Alhamdulillah Aryan is getting much much better. He is a strong boy despite the difficult situations he had to go through. His seizures now almost disappear and we already off him from medication for about 2 weeks. I mentioned almost disappear because sometimes kalau dia terlampau stress, ada bunga-bunga macam nak jadi seizures juga but I would immediately alihkan focus dia and Alhamdulillah nanti tak jadi lah fit itu.Cuma his usus yang masih sakit. Sangat-sangat sakit pada waktu petang dia kata, Masa tu dok merengkot macam udang badan dia menahan sakit. Allahuakbar. Rasa I fail to be a mom because when he complains sakit perut the most that I could do is gosok perut dengan minyak. Sambil hati berdoa sungguh-sungguh Allah angkat segala kesakitan yang dia rasa. During our last follow-up visit with Dr Faizel, he said the effect of SJS could last for 2-3 months until complete recovery. Kegilaan apakah sampai 3 bulan weh?

Btw, currently kami sedang menjalani 3 rawatan alternative. First is Accupressure, Second is rawatan Islam As-Suffi, Third is using Essential Oil. All in parallel. Alhamdulillah we are seeing significant positive results and improvements, Alhamdulillah syukur Ya Allah.

With this experience, again aku memang dah skeptical dengan medication yang Aryan consume. Dalam kepala otak dah set yang his body akan ada intolerance with most of the medications. Dah 2 drugs did not work on him, what else do I want to expect from the rest? Thanks but no thanks. Like seriously, kalau happen to anak-anak awak sekalian, I bet you will feel the same.

Full story of our experience aku tulis di sini. I found it very hard to get info/sharing pasal seizures & epilepsy on the web (in Malaysia context). Tak ramai yang willing to share. That's why I decided to create a specific blog to evidence our journey on this. Hopefully it will create awareness and also help other parents yang clueless macam aku masa mula-mula gone through this.