Guide Number One

The Epilepsy Foundation is a national non-profit with about 50 local organizations in America. It works to prevent, control, and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. Definitely the guide number one to learn about Seizure and epilepsy.

Newly Diagnosed

This is the easiest way to find help near you. Most local Epilepsy Foundations provide information and referral assistance; maintain individual and family support services; serve as advocates for the rights of those with epilepsy; and offer community-based education to employers, emergency first-responders, school nurses, and other allied health professionals. Just enter you zip code.

The Rare Epilepsy Network, or REN, is a collaboration between different organizations that represent patients with a rare syndromes or disorders associated with epilepsy or seizures. The REN will establish a registry of these patients which includes patient or caregiver-reported data in order to conduct patient-centered research.

DSF research funds for Dravet syndrome and related epilepsies; increase awareness of these catastrophic conditions; and provide support to affected individuals and families.

Research

CURE has raised over $50 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE awards grants for novel research projects to prevent epilepsy related to post-traumatic epilepsy, advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures.

Parents, Family & Communities

PHP’s mission is to help children and adults with special needs receive the support and services they need to reach their full potential by providing information, training, and resources to build strong families and improve systems of care.

Parents and Caregivers of Children, Teens, Young Adults and Adults who suffer from Seizures, have been diagnosed with Epilepsy, Dravets Syndrome, LGS so that we can spread awareness and TALK ABOUT EPILEPSY and bring an end to this horrible infliction.

The American Epilepsy Society is one of the oldest neurological professional organizations in the country. The Society seeks to promote interdisciplinary communications, scientific investigation and exchange of clinical information about epilepsy. ‘Working toward a world without epilepsy”.

Neurology Now, an official publication of the American Academy of Neurology (AAN), provides patients and their caregivers with credible, up-to-the-minute, balanced coverage of the latest advances in neurology research and treatment.

UCP educates and provides support services to ensure a life with no limits for people disabilities. They work with over 176,000 people with a broad range of disabilities every day to ensure their productivity and full citizenship.

Legal

Getting legal help to end epilepsy-related discrimination and injustice through education and increased access to legal services for individuals with epilepsy — through a system of managed referrals and legal support to a nationwide network of attorneys committed to this cause.