Thursday, August 15, 2013

At our TEDDY site we were lucky that there was a planned event where families could get together for a free evening of fun and meet other TEDDY families. The tradition for 4 years was a light dinner and free evening at the Children’s Museum. I attended all 4 years and my son has attended 3 years, the 1st party was before my son was born. The last Children’s Museum event was one of my favorites as my son was at a great age to really play. Halfway through the evening we found a wolf costume and he was so excited to be the Big Bad Wolf a character he had learned about on Sesame Street and reading books. He ran around the room and climbed up the tree roots yelling to other kids “I’m the Bad Wolf.” I think he was roaring at kids too, I hope he didn’t scare any young ones! He had so much fun and asked for days, “Go to TEDDY Party again mommy?”

Tuesday, April 23, 2013

Why do we participate in TEDDY? I may be unusual in that I
really like research studies. I’ve participated in several studies since I
started working in research. Some studies compensated with money for my time
and some did not, I participated just to help out. I also enjoy reading about
health related research findings in the news. I’m interested in many health
outcomes as type 1 diabetes isn’t the only disease my family is at risk of
developing.

After I got the phone call that my son has the higher risk
genes, a call I’ve in fact made to parents countless times, I told my husband
the news. He just said “Sign him up, why wouldn’t we?” I also wanted to have my
son participate for many reasons. Some of my reasons are more selfish than
others. I really want to know those antibody results and I’m a little anxious
each time I receive results. I like that we are a tiny piece of an
international research study, that the information we give about our son may
someday be part of finding the cause or prevention for type 1 diabetes. I know
how important every single TEDDY child is and I’m glad that if my child had to
have the high risk genes at least he can be monitored, followed and help this
important research study.

While many of the children
born to staff members were screened
for the high risk genes since
TEDDY began in 2004, there had not been a child of a TEDDY staff member eligible for the
follow-up at our site until the results came in for my son and then C’sTEDDYMommy
received results at the same time.Privacy was a concern at the very
beginning but now I don’t mind sharing that we participate in the study. We are
proud to be a part of the TEDDY study and I hope someday in the future my son
is proud too.

Why do you participate in TEDDY? I’d love to have other
parents write why they participate or why TEDDY is important to their families.
If you don’t want to write but are still interested in sharing your experience
we can speak on the phone and I’ll write your story in an interview format.
Please email teddymomblog@gmail.com
or contact your TEDDY site by email or phone.