Familles

Ressources

Ressources pour les familles des enfants prématurés

Websites

Baby First: Parent’s Corner: This site provides educational resources and support to parents and caregivers of premature infants, including sections on life with your baby in and after the NICU, plus parent stories, as well as a glossary of NICU terms.

Preemie Parent Alliance (PPA): The PPA represents US organizations that provide support to parents of preemies. Each of its member organizations are run by parents of preemies and provide resources, support and information for families of premature infants. See the “Meet our Members” page for a listing of many parent organizations across the United States.American Academy of Pediatrics – Section on Perinatal Pediatrics: The AmericanAcademy of Pediatrics has a page dedicated to information for families.

Early Intervention Colorado: This program provides early intervention supports and services to infants, toddlers and their families within their communities. Although the program is specific to Colorado, the web site also offers many resources in English and Spanish for parents and caregivers of children born prematurely.

KidsHealth: A Primer on Preemies: This site on children’s health, behavior and development has a section that describes common health problems of premature infants and life after the NICU.

March of Dimes: Prematurity: This nonprofit organization for pregnancy and baby health is dedicated to preventing birth defects, premature birth and infant mortality. The web site has sections tailored to NICU families, along with personal stories from families and a place to share your story with others.

MedlinePlus: Premature Babies: A service of the U.S. National Library of Medicine and the National Institutes of Health, this site includes links to articles, web sites and other information—from the basics of preterm labor and the latest research to financial issues and information about different medical conditions.

Premature Baby — Premature Child: This site was started in 1996 by parents whose son was born at 26 weeks. Their goal is to support other parents by providing information, resources and a way for parents to connect. It also offers help for parents of school-age children and discusses long-term impacts of prematurity.

ZERO TO THREE: This national nonprofit promotes the health and development of infants and toddlers by informing, training and supporting parents, professionals and policymakers. (Note: Complete the free registration to get full access to the site’s online resources.)

European Foundation for the Care of Newborn Infants:The European Foundation for the Care of Newborn Infants (EFCNI) is a pan-European organization representing parents and scientific experts with the aim of improving the long-term care of preterm and newborn infants with illnesses and support for their families.

Canadian Premature Babies Foundation: This organization seeks to prevent preterm birth through education and research: supports the best standards of care for premature babies; and gives premature babies and their families a voice across Canada.

The Premature Baby Book: Everything You Need to Know About Your Premature Baby From Birth to Age One (2004) by William Sears, Robert Sears, James Sears and Martha Sears, Little, Brown and Company, New York.

What to Do When Your Baby Is Premature: A Parent’s Handbook for Coping with High-Risk Pregnancy and Caring for the Preterm Infant (2000) by Joseph A.Garcia-Prats and Sharon Simmons Hornfischer, Three Rivers Press, New York.