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A mother has told the emotional story of her 14-year-old daughter’s decision to have a double lung transplant to extend her life expectancy beyond her 16th birthday.

Jasia and Nick Ingamells’ daughter Kelsey was diagnosed with life limiting Cystic Fibrosis at three months of age.

People with Cystic Fibrosis, which is genetic, experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body.

Over the years, despite medical intervention in the form of various medication, Kelsey’s condition began to deteriorate and the mucus began to affect her lungs and breathing with her needing oxygen overnight, every night.

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Kelsey was put on the transplant list for eight weeks before a lung donor was found.

The family were awoken by a call at 4.58am from staff Great Ormond Street on September 6 to say they had a set of lungs for Kelsey and someone would arrived within an hour to collect us.

Jasia said: "They arrived swiftly and we arrived at the hospital at 7.30am. Pre-transplant meds were given and Kesley was taken theatre at 6.48pm and finally got to see her 5.30am the following morning, it was an awful wait.”

Jasia said the ambulance car arrived 15 minutes after the call and the family rushed to get in the car from their Boston home where they were blue-lighted to Great Ormond Street Hospital.

Soon after arriving at Great Ormond Street Kelsey was taken to theatre where the transplant was carried out. The Haven High Academy student remains in Intensive Care more than two weeks after the operation.

Kelsey Ingamells is in recovery

Jasia added: “Recovery varies and I think Kelsey’s recovery has been slowed down by an infection through sepsis shock.

"She has now had her drains removed and doctors seem happy with how things are progressing. It is just a waiting game now.

"It was a real shock when she first came back from theatre as she looked blue which really scared me but she’s a fighter and a strong girl and will continue to fight.

"When has recovered Kelsey will be able to walk about and not become breathless and lead a fairly normal life, like other children her age. She's a truly amazing young woman.

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The family is also hoping to raise awareness of Cystic Fibrosis, especially Kelsey who has created a Breath Easy Facebook group so people can follow her daily routines and find out the affects the condition has had on her.

Kelsey Ingamells is in recovery

Due to recovering in hospital, Jasia has taken over the blogging on behalf of Kelsey and is hoping to get as many ‘likes’ on the page as possible to show Kelsey how much support she has from the community.

The blog also documents Kelsey’s road to recovery each day.

Cystic Fibrosis

Cystic fibrosis is a life-threatening inherited diseases. It is caused by a defective gene. As a result, the internal organs, especially the lungs become clogged with thick sticky mucus resulting in chronic infections and inflammation in the lungs and difficulty digesting food.

Around 10,400 people in the UK have cystic fibrosis, that's 1 in every 2,500 babies born.

Cystic fibrosis is a genetic condition. One person in 25 carries the faulty CF gene, usually without knowing.

All newborn babies in the UK are now screened for cystic fibrosis shortly after birth using the heel-prick blood test. This tests for the most common mutations of the gene that causes cystic fibrosis.

There are more than 2,000 identified mutations of the cystic fibrosis gene. Cystic fibrosis is a very complex condition that affects people in different ways. Some suffer more with their digestive system than the lungs. Others have no problem with their pancreas.

Life expectancy is likely to be different for people of different ages.

“Kelsey will be so happy with the amounts of likes she has so far as she was only hoping to get 1,000, so please like the page. Kelsey called it Breath Easy as she is hoping she will be able to 'breath easy' when she has fully recovered," Jasia added.

Kelsey Ingamells is in recovery . She is pictured with her family.

A fundraising page has also been set up by local man Paul Sheridan to raise money for the family, for more information visit the Breath Easy Facebook page.