This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.

Saturday, March 5, 2011

Jaw Distraction surgery coming Monday...

Faith will have Jaw Distraction surgery and her adenoids taken out on Monday. Her sleep apnea has been handled by the bipap machine, but the setting is very high and we are very hopeful that this surgery will end her obstructive sleep apnea problem. This is a long process though and will require 3-7 weeks at U of M Children's Hospital. It will also give her a chance to eat on her own. The doctor says she cannot eat on her own with her jaw as it is because her jaw is too short. We will keep you updated as to the effects this surgery has, especially so those of you facing similar things can learn from our experience.