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COVID-19 Resources for Children with Special Health Care Needs

Last updated: June 3, 2020

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.

In response to the impact of COVID-19 on children with special health care needs and their families, the Lucile Packard Foundation for Children’s Health has awarded five emergency grants totaling $230,000 to local and national agencies. More information on the COVID-19 grants.

National Partnership for Women & FamiliesKnow Your Rights: Emergency Paid Sick Days and Paid Leave for Child Care and Coronavirus
The Families First Coronavirus Response Act (FFCRA) provides many workers new rights to paid sick time and paid family leave to use for certain coronavirus-related health and family caregiving reasons, including for quarantine and child care. The law contains important paid sick days and paid leave provisions that may help you take care of yourself and your family. The information is also available in Spanish.

Family VoicesCOVID-19 Series, April 2020
This three-part series focuses on a variety of topics aimed to support families of children with special health care needs including telehealth and parenting tips. The series is available in English and Spanish.

For Advocates

Center for Connected Health PolicyCOVID-19 Related State Actions
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.

Kidsdata.orgSafeguards for Youth and Responding to COVID-19
As a result of COVID-19, some health and well-being trend lines will pivot in previously unimaginable ways. Learn how we can use data to understand the long-term impacts on California children and protect their well-being.