Ps I meant I'm certain not just from this weekend but from many attempts to eat wheat eg to not appear difficult at friends' houses. But I just can't as it's not worth it and too difficult when I have young DS to look after

Notapizzaeater our DD was just like this too- 2 years of diarrhoea and me in years at the GP until finally a private doctor suggested giving up wheat and she improved dramatically. She seems to be outgrowing it v slightly though as no diarrhoea now if accidentally exposed to wheat

dd (11) has been wheat and gluten free since last summer. She would habe been very tired, always pale with dark circles round eyes. She would bloat when eating and often had a sore tummy. She is being checked for coeliac and crohns but is much better on a wheat free diet. Hope it helps you.

Smudging I could have written that myself - exactly like me apart from no achy joints here. i don't know anyone who's similar (though DD can't have wheat either). Finding the cause of my dramatic tiredness is such a relief as like you I thought I had some ME type thing for ages and was upset by it but tried to be as normal as I could. I still get brain fog but that might be tiredness from broken nights.I don't understand what causes it and whether it's an immune thing? Doctors haven't helped and nothing comes up with either of us with the allergy tests.

Also i wonder why does it start 'randomly ' as I are wheat fine for about 30 years!

Thanks Nicky2512. I hope your DD gets some answers though the main thing I guess is knowing to avoid wheat. I refused the biopsy for us as we'd be unable to eat wheat regardless of the results- I can't tolerate even a few breadcrumbs while DD (who had chronic pain with wheat) now in fact a bit better

Yes, I would like to know exactly what the problem is but even the gastroenterologist that she attends was reluctant to do biopsy at the minute since it would mean her going back to eating wheat/gluten. She is so much healthier now that it doesnt seem fair. Also she is very happy with her diet. She knows that she feels better and rarely complains about missing out on anything.

I agree Nicky2512. seems cruel almost to go back onto wheat for a biopsy. And well done your DD not minding- ours found it a relief too and never envies other people's chocolate cake or anything - even when she was 3.

Smudging I was reduced to 'coping' and just getting through each day having always had tons of energy. I wouldn't say I'm what I used to be though as having been a long distance runner I find walking even short distances now tire me in an odd way. Like you I've now found out other relatives similar- a great aunt and 2 first cousins have stopped eating wheat.