Steering Committee RCN Vice Chair SOW

Deliverables

Develop/update communications plan for committee which will be included in the committee’s annual report,

Provide written updates for newsletters,

Identify potential successors at least one year prior to expiration of term,

Assistance the Chair to develop a written plan for a CARRA Research Coordinator Mentoring Program and other projects as requested.

Activities

Develop and co-lead the CARRA Research Coordinator Network and oversee the general workings of the Network

Fulfills responsibilities of Chair when Chair is unavailable,

Serve as primary facilitator of communications within the Research Coordinator Network

Participate in the development and review of site training materials,

Provide input into CARRA Registry data collection and operations,

Prioritize and enhance CARRA research studies and Registry enrollment and site performance, including working with his/her site as well as others,

Attend monthly Steering Committee meetings (conference calls), currently held the 2nd Friday of each month from 2-3:30PM Eastern time,

Attend face to face meetings of the Steering Committee,

Attend (in person) the CARRA Annual Scientific Meeting,

Represent CARRA as a consultant/resource to collaborators and other groups when needed

Participate in the planning of the Annual Meeting:

Co-lead (with Chair) the coordinator network’s committee meeting,

Assist with identifying keynote and plenary program speakers,

Assist the Chair with completion of an annual report including committee and workgroup progress, activities at the annual meeting, and future plans to the Executive Director of CARRA by May 30 of each year

Assist with planning of committee meetings,

Support and improve productivity of workgroups,

Communicate at least monthly with Chair on goals and progress of the committee and its workgroups,

Train and orient new Vice Chair,

Eligibility

Eligibility must be maintained for this position throughout the term. Requirements include:*

Serve as a study coordinator for the Registry or a Registry-based CARRA study at his/her site

Actively recruit, consent, enroll and follow participants for the CARRA Registry and other CARRA studies

Participate in biosample collection

Enroll new patients into CARRA studies on a regular basis (for the CARRA Registry, this is defined as a minimum of one new subject enrolled per month)

Remain up to date on data entry and regulatory requirements for all CARRA studies that the coordinator is staffing

Attend/Participate in DCRI CARRA Registry Site Calls

Remain responsive to CARRA and DCRI queries and communications, participating in DCRI-led CARRA Registry site calls

Must be a member in good standing.

Member is current on membership dues and membership information (location, contact information, and membership status) is up-to-date

Member participates in at least one Research Committee (e.g. JDM, JIA, SVARD, etc.) of CARRA

Member has attended at least one annual CARRA meeting over the last 3 year period

Term

Three year term (7/1/2019 - 6/30/2022)

An estimated/average 2 hours weekly will be needed to perform these duties. This role includes compensation of 5% of salary plus fringe.

*time required to maintain eligibility is not funded effort through this position