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About Dystonia

Dystonia is a neurological movement disorder that causes involuntary muscle contractions, which force the body into abnormal, and sometimes painful, movements or postures. Dystonia affects
men, women and children of all ages and backgrounds and causes varying degrees of disability and pain,
from mild to severe. It is the third most common movement disorder behind only Parkinson’s and Essential
Tremor (estimates suggest that at least 300,000 – 500,000 people are afflicted in North America alone).
There is presently no cure, but some treatment options exist and scientists around the world are actively
pursuing research towards new therapies, and ultimately a cure.

About Cure Dystonia Now

Cure Dystonia Now is a public charitable organization that is run by volunteers
and is working with researchers on cutting edge treatments and ultimately a cure for Dystonia. We are
pleased to be working with several of the pre-eminent scientists in the field of Dystonia, who comprise our
Medical and Scientific Advisory Council (MSAC). The MSAC conducts peer-review of research applications,
sets the direction of research and makes recommendations to the Board for funding research. You can read about the research we have funded here

CDN Org Dox & Filings

IRS Form 990
Form 990 is an annual reporting return that certain federally tax-exempt organizations must file with the Internal Revenue Service (IRS). It provides information on the filing organization’s mission, programs and finances.

Medical and Scientific Advisory Council

The Medical and Scientific Advisory Council (MSAC) is comprised of pre-eminent scientists in the field of Dystonia. Members will conduct peer-review of research applications, set the directions of research and make recommendation to the Board for funding.

Dystonia patient registries

Patient registries help researchers better understand dystonia by collecting information directly from volunteers who are diagnosed. Individuals are encouraged to consider participating:

Global Dystonia Registry
The goal of the Global Dystonia Registry is to support dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia.. CDN is proud to support the Global Dystonia Registry.

Grateful Acknowledgement

We gratefully acknowledge the Dystonia Coalition, Tyler’s Hope and in particular the DMRF for all the assistance and guidance provided and which they continue to provide, which has permitted us to not expend resources duplicating the outstanding work they perform.

donations

Your gift to Cure Dystonia Now will fund research toward more and/or improved treatments, and ultimately a cure, for Dystonia. We welcome and appreciate donations of any amount. Donations to Cure Dystonia Now are tax deductible as allowable by law.