Hi, just joined.. After some general advice. Since I was 16/17 (25 now) I began with symtoms.. Slowly but surely I now have a huge list.. I think I've included everything, but no doubt I will have missed something..

Symptoms

Tired 80 % of the time

Moody

Irritable

Pains in finger

Ringing in ears / ears go funny

Knees

Neck

Ankles

Shoulders

Majority of back

Sides of hips / thighs / bottom really ache and throb, in the night constantly toss and turn with the pain

Pain in hips

Hurts when scratch / touch body mainly legs arms back, chest

Head aches

Very painful heavy periods with blood clots

IBS Symptoms

(Seem to be putting on weight very very easily)

Itch a lot

Wake you in the night a lot

Over active bladder

Anxiety/panicky

Loss of sex drive

Stiff a lot, mainly neck shoulders back (lower back worst)

Pins and needles in fingers legs toes

A very strange tingling feeling in my back

Forgetful / concentration is dreadful (a student at uni find this is hard)

It's only really been the last 9 months I've started to symtoms check. (I have noticed I am hot cold etc, I can't regulate my temperature). I've always been that person sweating without a coat on in winter, or wrapped up in summer, my temperature varies massively and it doesn't feel like weather related.. At first I thought it was all linked to my endo, my dad also has AS ( ankylosing spondylitis ) so I wondered if something along those lines, but inflammation tests are all showing as normal.. Agreed all symtoms could link to something else.. I'm just so tired of feeling like this, what upsets me the most is feeling I cannot complete simple tasks, which leads to being irritable with my friends family and children, I just want to feel well. obv those are all symtoms, some personal, just inc everything I could think of which bothers me.. X

Hello charlotte and welcome, the only thing I would like to add is when you see the rhumy , write everything down.Take it with you and give it to him.it is so easy in a stressful situation to forget even the most important things, as I did on my last visit to neurologist. Out of 3 questions I could only rembemer 1..... sue.

like you had a lot of symptoms in constant pain thought it was my scoliosis but eventually when i went to see someone at the hospital i was diagnosed with degenerative spine disease and sacroiliitis.You need to be referred to a pain management clinic

Thanks, at the moment I literally have no idea why I feel like this, I'm 25 with two children I love and adore but I'm constantly in pain, sleep deprived and irritable, I just want someone to listen and answer why. What will a pain management clinic be able to offer? (That might sound like a silly question because I take it, it explains in the name) but are they after diagnoses? X

A Pain management clinic will be able to answer all of your questions and listen and prescribe the right medication and course of action for your diagnosis they will monitor you closely and liase with your doctor i felt like you and to be honest i felt no one believed me until i went to see them hope this helps.x

Brill thank you, I have a rheumatology app on 27th dec, should I wait to see what they say? I just can't wait to get some answers, I've noticed AS and Sacroiliitis have some links.. AS is my biggest fear after watching how it's affected my Dad. I have waves of occasional energy where I can get things done, but recently I am physically exhausted, feel so disheartened x

For years went mad with an itchy back, then I had to have an operation for a burst appendix and when I came out they gave me a bottle of liquid wash called "Hibiscub" to was the wound with. One day I decided to shower with it and found the itchiness had gone, now I get it on prescription and rarely itch, even when I do it's only mild. I Don't know if it'll help with you but might be worth a try; apparently it's used by surgeons to wash their hands before they operate, it's also used as a shampoo for horses.

As you can see from the list of conditions, there are others with similiar symptoms the medical profession will exclude before a diagnosis of Fibro is made. Here is another link about symptoms of Fibro;

All these pages are downloadable so you can easily print the information Factsheets for your reference

Reading through your comments I was tested for AS as the initial first possible diagnosis and then this lead to having further testing as they tried to diagnose me. In regards the discussion regarding Pain Clinic here is a post that explains about the services they provide;

I hope this information is helpful. Please take a look at our pinned posts which are on the right hand side of the page as this are usually important and it includes posts about our guidelines, how to use the community etc

I just noticed that you mention period problems.This is something that I had years ago,luckily my nearest hospital was trialing a new treatment called abolation where the lining of the womb is destroyed. it only took 10 mins under general anethetic and was back at work the next day No more problems. This was 15 years ago and I think it is more widely available now.but you do have to be sure that you do not want more children. May be worth looking into......sue

Thanks for reply, funnily enough I've heard a lot about this recently as it seems to be a treatment for endometriosis.. Which I have, I do have two children already but I am possibly looking at extended my family more in the future, so unfortunately it's not an option for me currently, but defiantly something I would consider later in life x

Hi just red your post i started with my pains and problems when I was twenty one And had my first chid. I to suffer with a great list of ailments like your self ( which I won't bore you with ) one in particular I share is the coccyx pain I suffer from coccydynia, and have been having treatment for it for the last six years through the pain clinic. My experience with them hasn't been good. I've always been made to feel like I'm a nuisance and they don't do certain procedures ( post code lottery ). My gp and counsellor agree that it's time to look for treatment out of county. Soz I'm waffling just wanted to say I hope you get your coccyx sorted before it gets to the point that you can't sit ( without excruciating pain ) at all and I wish you better luck than I had ( I'm to much of a wimp and push over and hate making waves )

Aw no sounds like your having a horrible time of it. The pain I get from my coccyx is horrendous, if I've sat for a short while or in a funny way I get shooting sharp and also dull pains, I feel very achy and stiff lower back so it just adds to it, hope you get some answers soon Hun, and people take you seriously and not make you feel unwelcome!! X