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#UniteForParkinsons around the world

Global update

Author: Aurore GroultPublished: 2 May 2018

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The 11 April marked World Parkinson’s Day and the second #UniteForParkinsons campaign. From Africa to Asia, we take a look at how campaigners around the world marked the events

On World Parkinson’s Day the world came together to join the second ever #UniteForParkinsons campaign.

The campaign – launched by the European Parkinson’s Disease Association and Parkinson’s UK – was a huge success, connecting with 199 different countries across the globe. The special #UniteForParkinsons hashtag was also used over 17,000 times – more than double last year’s figure – and the campaign reached a total of 8 million people.

#UniteForParkinsons also received support from key policy makers around the world – including UK Labour Party leader Jeremy Corbyn, Maltese president Marie-Louise Coleiro Preca and European Union commissioner for research, science and innovation Carlos Moedas.

To support #UniteForParkinsons, and mark the day in general, campaigners from all corners of the world teamed up to raise awareness.

Dinner in Rome

The Parkinson’s Centre at the San Raffaele Pisana hospital in Rome, Italy, supported the campaign with a charity gala dinner. The event was attended by a variety of famous faces – such as actress Tosca D’Aquino and TV presenter Massimo Boldi – who enjoyed a charity auction with prizes including a football shirt signed by former Italian footballer Francesco Totti.

Dancing in Malaysia

The Malaysian Parkinson’s Disease Association and the University Kebangsaan Malaysia Medical Centre supported the campaign with a dance performance at a “Pause for Parkinson’s” themed event held at the hospital.

Exercise in Victoria

In Victoria, Australia, the Donvale Rehabilitation Hospital encouraged all staff to take part in an intensive exercise regime to support World Parkinson’s Day and #UniteForParkinsons.

Raising awareness in Pakistan

The Neurology Awareness and Research Foundation, Pakistan, and the Movement Disorder Society of Pakistan held a special walk on World Parkinson’s Day to raise awareness about the condition.

Cricket in Dubai

In honour of World Parkinson’s Awareness Month, campaigners in Dubai participated in the VFS Tasheel and Movement Mantra Hold Indoor Cricket Tournament.

IN THE NEWS

A study published in the ‘Journal of Clinical Investigation’ has suggested mechanisms that lead to Parkinson’s in adulthood, may begin much earlier than previously thought. The study, carried out by Northwestern University, Illinois, US, researched movement disorder spinocerebellar ataxia type 1 by genetically engineering a mouse to mirror the human disease. Researchers found that altering circuity in the cerebellum – an area of the brain that controls movements – set the stage for later susceptibility to neurological disease. Professor Puneet Opal, who worked on the study, said: “This is the first discovery of alterations in an adult-onset spinocerebellar disorder that stems from such early developmental processes. “This may well be generalisable to a whole host of other diseases, including Alzheimer’s disease, Huntington’s disease, Parkinson’s disease and amyotrophic lateral sclerosis.”

Global Kinetics receives vital funding

Australian-based health company Global Kinetics has received a $AUS 7.75 million investment from the Australian Federal Government’s Biomedical Translation Fund. The investment will be used to commercialise its Parkinson’s KinetiGraph – a smartwatch-style device that continually tracks the involuntary movements of those living with the condition. In addition to the sum from the Australian government, Global Kinetics also announced they are to receive a grant from The Michael J Fox Foundation, Shake It Up Australia Foundation and Parkinson’s Victoria. Mark Frasier, senior vice president of research programmes at The Michael J Fox Foundation, said: “The experience of Parkinson’s varies day-to-day, hour-to-hour. An objective tool, such as the wearable PKG technology, that passively collects data on the experience of Parkinson’s disease could give patients and their doctors greater insight to calibrate treatment plans and improve outcomes.”

Smartphone app detects severity of Parkinson’s symptoms

A smartphone app– created by researchers from Johns Hopkins University, the University of Rochester Medical Centre and Aston University – can detect the severity of symptoms in people with Parkinson’s, according to a recent study. The study, which appeared in medical journal ‘JAMA’, found that the HopkinsPD app generated severity score levels which strongly correlated with standard movement tests given by physicians. HopkinsPD is expected to help medical professionals analyse Parkinson’s symptoms. Dr Ray Dorsey, neurologist at the University of Rochester, said: “Until these types of studies, we had very limited data on how people function on Saturdays and Sundays because patients don’t come to the clinic. “We also had very limited data about how people with Parkinson’s do at two o’clock in the morning or 11 o’clock at night because, unless they’re hospitalised, they’re generally not being seen in clinics at those times.”