I have been on the gluten free diet for almost 11 months now. I have seen improvements since going gluten-free but a lot of symptoms have not gone away. My continuing symptoms include; diarrhea, upper midline stomach pain (sometimes severe), nausea (I need to take gravol so I don't vomit), bloating, gas, low energy, and fatigue. I feel that some of these symptoms should be diseapearing since I have been on the diet for almost a year. My entire digestive system has now been explored by endoscopy and colonoscopy. I have celiac disease but I don't have crohn's/ulcerative colitis/stomach ulcers/or any other diseases of the gastro-intestinal tract. I have also been tested for 2x for thyroid and got a negative both times.

I have been doing some research and have came across pancreatitis as a probable cause for my continuing symptoms. Some symptoms of pancreatitis include; upper midline abdominal pain that may radiate to the back, nausea, vomiting, diarrhea, weight loss, abdominal swelling, symptoms of malabsorption, problems with digestion, just to name a few (a quick google search will tell you more).http://www.healthsco...sofPancreatitis

I have found some evidence that pancretitis may be related to celiac:"Celiac disease is known to be associated with either pancreatic insufficiency or liver disease, but association of all three diseases has not yet been described. We suggest that chronic pancreatitis be added to the list of idiopathic inflammatory pancreatitis of possible autoimmune origin, enabling to explain the pathophysiology of all three disorders with one hypothesis"http://www.ncbi.nlm....st_uids=2625189"Painless pancreatitis with extensive calcification and villous atrophy of the small intestine was observed in a nonalcoholic female patient."http://www.ncbi.nlm....ist_uids=605891

I was wondering if anyone else has chronic pancreatitis or pancreatic insufficiency in addition to celiac disease? And I was wondering what your thoughts were?

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Carrie Faith

Diagnosed with Celiac Disease in March 2004Postitive tTg Blood Test, December 2003Positive Biopsy, March 3, 2004

Great work here once again, Medaka. I'm going to get into part of this w/ my paper, but it is my thought your line of thinking here is closer than just about any of the other alternative theories available.

The concept behind the thought that a condition like or very similar to Pancreatitis cannot and should not be ignored. The correlations that are clearly at work between Celiac and Diabetes should make this very evident, in my opinion.

What causes Pancreatitis? Well, we know that alcoholism has been linked. We know that higher lipids can bring this on(Liver relation). We know that mumps (Other infections, too?) can trigger this. Reduced blood flow (Lupus, Raynaud's, etc) has been associated to the condition, so can gallstones. Of key interest to me is the acknowledgement that several of the diuretic and immunosupressive drugs can touch off Pancreatitis as well. I will touch on what I have found in this specific area in my summary, but do believe something of major relevance takes place when a beta blocker and a diuretic are given in combination.

This is just one of the many conditions that can be traced back to Celiac Sprue, unfortunately, but I do feel that if there are three conditions directly implementing Celiac in its very pathway, it is SLE, Pancreatitis, and PBC.

The frustrating variable always goes back to the type of incomplete theories we have available to study. Pancreatitis in and of itself is an incomplete theory. The liver obviously has its role with Pancreatitis in most cases, in other words. And than there is the possibility that Pancreatitis itself is nothing more than an end result of Celiac Sprue. Is it possible that Celiac Sprue causes Pancreatitis, rather than supporting the mindset that Pancreatitis may cause Celiac Sprue? Sure.

So, in the case of Pancreatitis, it seems to go back to the same theory that must be applied over and over again-Pancreatitis is merely the result of something else that has gone wrong with the system. Outside of the possibility for the presence of Gallstones, which could than cause Pancreatitis, leading to damage of the villi, it would appear that in all other cases Pancreatitis AND Celiac Sprue are one and of the same, and they are nothing more than the result of another imbalance of the system, that being stress caused by a toxin (Medication, systematic alcohols, heavy metals, food or airborne source) and the (potential) state of systematic PH imbalance these may bring. Damage to the liver or infection would appear to be the only other possibilities, w/ all of these conditions (Possibly) having their impact on the amino profile along the way.

I do believe that one "condition" that really needs to be looked at for a few of those that have had vaccines over the past few years is Gullain Barre's Syndrome, too. For anyone that refuses to believe that vaccination can have a great impact on the system if given to the "Wrong person," I would invite any of you to speak to anyone that has been afflicted with Gullian's Barre. You would find their personal stories comparable to many of the symptoms that a few of those here are going through.

The key issue to take away from this is the acknowledgement that guillain-barre's is an inflammatory condition (See Pancreatitis-all of these spin offs are inflammatory, essentially).

While this article does not address the concept, the Merck's manual and 90% of the other available literatures and doctors, for that matter, indicate the worst waive of Guillain's ever before seen was in 1976, an outbreak that was traced back to the flu vaccine given that year. Remember now, in the 70's that Mercury was pumped into those vaccines moreso than any other period we know of. Coincidentally, you will also find the symptoms of Guillain Barre's almost exclusively similar in nature to those documented, gov't sponsored sources having to do with Mercury toxicity in and of itself. Mercury is still being used in almost all of today's vaccines. This is just one of the many possibilities that may explain for the inflammatory process running rampent in today's culture, but it should come as relevance.

Finally, an "Endoscopy gone bad" is another known cause of Pancreatitis. If one fully believes they may have Pancreatitis, it may not hurt to get a 2nd opinion in the unlikely event that your current GI doc may have damaged your GI tract.

Pancreatitis may be my problem...
It seems to be the only thing that makes sense to me right now and the only thimg that explains of my continuing symptoms. I've been blaming some of my severe pain on gluten contamination, but I am so careful on eating gluten free that I am finding it very hard to believe that I am getting contaminated all the time. And I think that symtoms such as chronic diarrhea would have disseappeared after 11 months on the diet.

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Carrie Faith

Diagnosed with Celiac Disease in March 2004Postitive tTg Blood Test, December 2003Positive Biopsy, March 3, 2004

Finally, an "Endoscopy gone bad" is another known cause of Pancreatitis. If one fully believes they may have Pancreatitis, it may not hurt to get a 2nd opinion in the unlikely event that your current GI doc may have damaged your GI tract.

I had this happen to me, my pancreas seemed to basically shut down after a horrible reaction to an endo. Even at celiacs worst I never saw totally undigested food in my stool like I did after that endo. If you have any links to research on this I would be very interested in seeing them. Mine resolved with the short term use of pancreatic enzymes.To the original poster I did have a few very painful bouts with pancreatitis before celiac diagnosis but nothing like the effect after the endo.

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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying "I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45Blood tested and repeatedly negativeDiagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis All bold resoved or went into remission with proper diagnosis of Celiac November 2002 Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56Twin brother died as a result of autoimmune liver destruction at age 15

I have been on the gluten free diet for almost 11 months now. I have seen improvements since going gluten-free but a lot of symptoms have not gone away. My continuing symptoms include; diarrhea, upper midline stomach pain (sometimes severe), nausea (I need to take gravol so I don't vomit), bloating, gas, low energy, and fatigue. I feel that some of these symptoms should be diseapearing since I have been on the diet for almost a year. My entire digestive system has now been explored by endoscopy and colonoscopy. I have celiac disease but I don't have crohn's/ulcerative colitis/stomach ulcers/or any other diseases of the gastro-intestinal tract. I have also been tested for 2x for thyroid and got a negative both times.

I have been doing some research and have came across pancreatitis as a probable cause for my continuing symptoms. Some symptoms of pancreatitis include; upper midline abdominal pain that may radiate to the back, nausea, vomiting, diarrhea, weight loss, abdominal swelling, symptoms of malabsorption, problems with digestion, just to name a few (a quick google search will tell you more).http://www.healthsco...sofPancreatitis

I have found some evidence that pancretitis may be related to celiac:"Celiac disease is known to be associated with either pancreatic insufficiency or liver disease, but association of all three diseases has not yet been described. We suggest that chronic pancreatitis be added to the list of idiopathic inflammatory pancreatitis of possible autoimmune origin, enabling to explain the pathophysiology of all three disorders with one hypothesis"http://www.ncbi.nlm....st_uids=2625189"Painless pancreatitis with extensive calcification and villous atrophy of the small intestine was observed in a nonalcoholic female patient."http://www.ncbi.nlm....ist_uids=605891

I was wondering if anyone else has chronic pancreatitis or pancreatic insufficiency in addition to celiac disease? And I was wondering what your thoughts were?

2 years ago, i was tested(blood) due tto similiar symptoms. My pancreatic enzyme(lipase I think) was elevated. It is the one which helps digest protein. I had the pain that radiated to the back. I had ultrasound done also, everything looked good. But now, after all that time and no relief i stumble onto gluten and celiac and been Gluten-Free fro 3 weeks and all those symptoms are gone unless I gluten myself. I feel like a new person. So, if there is a link, htats not good. Pancreatitis if not controlled is a death sentnence. The tissue dies and thus no more panreas.

It seems that the gluten intolerance leads to mineral deficiencies such as magnesium. If you google that you will find all those symptons. Once these minerals are restored you should feel much better. Gluten intolerance and pancreatitis are linked. Good luck.

I was told 3 years ago that I had pancreatic insufficiency caused by chronic pancreatitis as a direct result of celiac. If you google "exocrine pancreatic insufficiency celiac" you will get a lot of information. I was started on Pancrease MT 20 at that time and I've been fine since as long as I make sure to take the enzymes with every meal/large snack.

2 years ago, i was tested(blood) due tto similiar symptoms. My pancreatic enzyme(lipase I think) was elevated. It is the one which helps digest protein. I had the pain that radiated to the back. I had ultrasound done also, everything looked good. But now, after all that time and no relief i stumble onto gluten and celiac and been Gluten-Free fro 3 weeks and all those symptoms are gone unless I gluten myself. I feel like a new person. So, if there is a link, htats not good. Pancreatitis if not controlled is a death sentnence. The tissue dies and thus no more panreas.

Did it take a full 3 weeks to get better? Did you try and go low-fat to try and heal the pancreas?

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For God loved the world so much that he gave his one and only Son, so that everyone who believes in him will not perish but have eternal life. - John 3:16

I was told 3 years ago that I had pancreatic insufficiency caused by chronic pancreatitis as a direct result of celiac. If you google "exocrine pancreatic insufficiency celiac" you will get a lot of information. I was started on Pancrease MT 20 at that time and I've been fine since as long as I make sure to take the enzymes with every meal/large snack.

I hope you find some relief soon!

What were your symptoms like? I have a lot of pain in my upper left quadrant, left side and a bit in the back, but a CT scan showed no inflammation of the pancreas.

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For God loved the world so much that he gave his one and only Son, so that everyone who believes in him will not perish but have eternal life. - John 3:16

What were your symptoms like? I have a lot of pain in my upper left quadrant, left side and a bit in the back, but a CT scan showed no inflammation of the pancreas.

Honestly I didn't realize I had been in pain until the pain was gone. I was sent back to GI because I kept ending up in the ER with heart issues/muscle cramps due to chronically low potassium/magnesium levels. They did an EGD and found that my intestines looked good but I had atrophic gastritis caused by B12 deficiency and malnutrition. Rather then do a bunch of nasty tests they did the most telling test possible. They started me on the enzymes and said I would feel better in a week if that was the issue. It took 2 weeks but WOW! HUGE difference, I had energy, a lot of the brain fog went away and the only time I've had problems with the mag/pot levels is if I haven't taken the Pancrease for a couple days (like went out of town and forgot to pack them)

A friend of mine has been in the hospital on and off for months due to pancreatitis, and they have finally linked it to a low functioning gallbladder and are taking it out now. I hope that she feels better. She has been on an IV bag for months now, unable to eat anything.

Honestly I didn't realize I had been in pain until the pain was gone. I was sent back to GI because I kept ending up in the ER with heart issues/muscle cramps due to chronically low potassium/magnesium levels. They did an EGD and found that my intestines looked good but I had atrophic gastritis caused by B12 deficiency and malnutrition. Rather then do a bunch of nasty tests they did the most telling test possible. They started me on the enzymes and said I would feel better in a week if that was the issue. It took 2 weeks but WOW! HUGE difference, I had energy, a lot of the brain fog went away and the only time I've had problems with the mag/pot levels is if I haven't taken the Pancrease for a couple days (like went out of town and forgot to pack them)

BlueTaelon & others, Do you know what types and levels of enzymes you were taking? I am interested in pursuing this therapy.

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For God loved the world so much that he gave his one and only Son, so that everyone who believes in him will not perish but have eternal life. - John 3:16

I have been on the gluten free diet for almost 11 months now. I have seen improvements since going gluten-free but a lot of symptoms have not gone away. My continuing symptoms include; diarrhea, upper midline stomach pain (sometimes severe), nausea (I need to take gravol so I don't vomit), bloating, gas, low energy, and fatigue. I feel that some of these symptoms should be diseapearing since I have been on the diet for almost a year. My entire digestive system has now been explored by endoscopy and colonoscopy. I have celiac disease but I don't have crohn's/ulcerative colitis/stomach ulcers/or any other diseases of the gastro-intestinal tract. I have also been tested for 2x for thyroid and got a negative both times.

I have been doing some research and have came across pancreatitis as a probable cause for my continuing symptoms. Some symptoms of pancreatitis include; upper midline abdominal pain that may radiate to the back, nausea, vomiting, diarrhea, weight loss, abdominal swelling, symptoms of malabsorption, problems with digestion, just to name a few (a quick google search will tell you more).http://www.healthsco...sofPancreatitis

I have found some evidence that pancretitis may be related to celiac:"Celiac disease is known to be associated with either pancreatic insufficiency or liver disease, but association of all three diseases has not yet been described. We suggest that chronic pancreatitis be added to the list of idiopathic inflammatory pancreatitis of possible autoimmune origin, enabling to explain the pathophysiology of all three disorders with one hypothesis"http://www.ncbi.nlm....st_uids=2625189"Painless pancreatitis with extensive calcification and villous atrophy of the small intestine was observed in a nonalcoholic female patient."http://www.ncbi.nlm....ist_uids=605891

I was wondering if anyone else has chronic pancreatitis or pancreatic insufficiency in addition to celiac disease? And I was wondering what your thoughts were?

i have been celiac for 8 years now....but for the past 1-2 years i have been having stomach/bowel problems. blood work looks good, so it seems it is not because of me ingesting gluten. dr. thinks it is a pancreatic insufficiency, put me on creon. it seemed to have helped some, but not completely. i think i have colitis, but not sure without dr. diagnosis. you can have pancreatic issues with celiac disease. i would talk to your dr. about it....maybe some medication (creon is an enzyme) may help. i guess i need to call my dr. to see what the next step for me is since the creon is not working as well as it did before.

I was wondering if anyone else has chronic pancreatitis or pancreatic insufficiency in addition to celiac disease? And I was wondering what your thoughts were?

I actually found the link to this forum while looking for a link between pancreatitis and celiacs. Like you, I have never been a drinker (2 mixed drinks a year is my average), so I went looking for any link to gluten sensitivity.

I have had ongoing stomach problems for about 2 years. When I first went off gluten, things got better for about 3-4 months, then returned after a stresor. And since I'd done the scopes/xrays/blood tests at the regular doctor, and all they could tell me is that my gut was inflamed, I decided upon a Naturalpath in our area.

He did one test, and found the pancreatitis. I hope it's okay to provide a link to him, because he does do this test (stool/saliva) for out of state patients. Ran about $350 and covered a lot of stuff. I'd recommend it to anyone who can't get answers out of a regular doctor.

35 yr old female, 4 yrs ago was dxd with GERD-lots of burning, could not be controlled. 2 yrs ago I started to have neuropathy-muscle twitching all over, stabbing/burning migratory joint pains, have had livdo reticularous rash from being in sun, other odd things like bumps on head. 1 1/2 yrs ago started to get upper left quad pains-sharp jabs/squeezes that would come and go. Turns out my lipase was doubled and remained slightly elevated (have not checked since). My drs did the following tests as my dad died of pan cancer so that had to be ruled out. I had a CT, MRI, MRCP, EUS another EUS 6 months later-all 100% clear. I have had colonoscopys and regular endoscopes (not the EUS that looks at the pancreas)-no stomach issues, no biopsy was done though

I have had many labs and my celiac came back fine. I cannot help to think this is all related-the neuropathy, pancreas etc... Here I am again with pancreas pains.

Also, I developed horizontal ridges and lines on all toes and nails, have had them for 2 yrs now.