Bentley's battle with the 'monster' is over... 3 months and 22 days... is over!

He now can smile, can laugh, can draw, can run, can tell silly jokes,again!
I believe he's having a great time seeing his great-grandparents, or playing with some new friends, like Mathew, AJ or Caitlan..

Please check out my blog for Bentley's Song of Love! Even though it's me who provides all the infos... I like the song, it's so sweet to have a song about Bentley!

Bentlley is now in his 'sleeping mode' all the time, but there's times that he's 'awake', and I'm sure he can hear and sense us when we hold his hand or hug him... I think he like his song too... because he gave me a 'facial movement' when I ask him if he likes it... and I take it as a 'yes'!

July 30, 2008 is the worst day of my life. It's the day that Bentley has dx with DIPG after feeling headaches, dizziness and numbness on his left fingers. He had a MRI the night before at the Children's Hospital Orange County, CA... and found out it's abnormal.... My brain just went blank, but then lots of questions came up to my mind and I remembered my husband was sitting there like frozen... but I kept asking questions to the doctors on what, when, how,... & why!? My brain just keep… Continue

lean on the DIPG parents or even the other Angel parents THEY KNOW(much more than i do) how to perhaps, if not COPE with the holidays, and maybe there is no coping, but perhaps just getting through it.
you remain in prayers sweet freda

Keeping you in my thoughts and prayers during this difficult time. May the warm memories you have of Bentley help carry you through the days ahead. I'm very sorry for what you are going through right now. Hugs...