Using My Health Record Data for Research Could Save Lives, But We Must Enure It’s Ethical

August 9, 2018

(The Conversation) – There has been considerable debate about the merits and risks of the My Health Record (MHR) scheme – ranging from the deep inefficiencies in the current system, to privacy issues and control of data. There has been less discussion of some down-the-track intended uses of this data for secondary purposes – such as for research. A rich dataset of health information could be used in studies that generate enormous benefits to society, but medical research is carried out under strict ethical guidelines. Unfortunately, a consent process where people are required to opt out rather than opt in doesn’t meet ethical standards for research.