On March 27, the very day we reached 100,000 signatures, another petition on the White House's We the People website also hit the mark. Sponsored by Budweiser and promoted through a professional ad campaign, "Declare Major League Baseball Opening Day a National Holiday" has already been graced with an official White House reply.

By dancing for 30 hours straight, I played a role in helping Team Joseph, a foundation that helps families battling Duchenne Muscular Dystrophy, the most common degenerative genetic muscle disease affecting children.

My advisors tell me to keep working the system, to keep the door cracked open by giving FDA officials opportunities to "save face" and encourage a new drug application for eteplirsen. But I cannot allow any more time to go by.

On Friday, March 7, more than 1,000 Northwestern students will gather in a large white tent behind the university's student center. Kicking off at 7 p.m., the students will dance for 30 hours straight into the early hours of Sunday morning just days before final exams.