Discussions By Condition: I cannot get a diagnosis.

Severe Leg Pain...Both Legs Please Help!

Good morning everyone, I am new here because I have been to numerous doctors and neurologists and have no answers. here are my symptoms

about 4 or 5 years ago i noticed a feeling of leg fatigue in both of my legs. the pain is located througout the calf and the hamstring, sometimes in the thighs. the pain is there 24/7 and nothing i have taken (advil etc) relieves the feeling. a way to describe this pain is they feel very very tight, similar to the feeling after you work out...when i stretch them out, i feel better but only for a few minutes. it does not affect how i walk, and i can run/do cardio workout without trouble but when i finish my first steps feel like i am floating...sometimes when i have been on a elipicatal working out when i try to step forward i lose my step, but this pnly happenes 1 or 2x a workout session. i dont have this feeling in any other body parts, just my legs. Also, i am always feeling tired and worn out. just last night i was falling asleep at 8 30 pm woke up at 6 30am for work and i feel like a zombie. sometimes this is better or worse but i generally never feel "fully charged"

there isnt a certain type of the day when it feels worse or better, it doesnt matter if i am sitting at my desk at work or about to lay down i am constantly in discomfort. there are some days/nights when it is worse than uaual but its never better...ive been dealing with this every day for 4-5 years and all i want is to wake up and not deal with this every year

i have had MRI's and CAT scans and had tests where they stick needles in my legs and thighs with electricty (EMG i think) and countless blood work. everything comes back "normal". i am a 26 year old male in good health--i am slightly overweight and i try to work out 3-4 times a week.i have MS in my family but MRS's supposidly ruled this out and doctors are saying no MS red flags are being waved, which is a good thing but i am back at square 1 with no answers in sight. frustrating!

it is getting to the point where this chronic pain is something i am just going to have to deal with my whole life and am starting to feel hopeless...anyone out there, please help me out!!!

if anyone has any questions, or want furthur information please responnd and i will update

18 Replies:

Good morning everyone, I am new here because I have been to numerous doctors and neurologists and have no answers. here are my symptoms about 4 or 5 years ago i noticed a feeling of leg fatigue in both of my legs. the pain is located througout the calf and the hamstring, sometimes in the thighs. the pain is there 24/7 and nothing i have taken (advil etc) relieves the feeling. a way to describe this pain is they feel very very tight, similar to the feeling after you work out...when i stretch them out, i feel better but only for a few minutes. it does not affect how i walk, and i can run/do cardio workout without trouble but when i finish my first steps feel like i am floating...sometimes when i have been on a elipicatal working out when i try to step forward i lose my step, but this pnly happenes 1 or 2x a workout session. i dont have this feeling in any other body parts, just my legs. Also, i am always feeling tired and worn out. just last night i was falling asleep at 8 30 pm woke up at 6 30am for work and i feel like a zombie. sometimes this is better or worse but i generally never feel "fully charged" there isnt a certain type of the day when it feels worse or better, it doesnt matter if i am sitting at my desk at work or about to lay down i am constantly in discomfort. there are some days/nights when it is worse than uaual but its never better...ive been dealing with this every day for 4-5 years and all i want is to wake up and not deal with this every year i have had MRI's and CAT scans and had tests where they stick needles in my legs and thighs with electricty (EMG i think) and countless blood work. everything comes back "normal". i am a 26 year old male in good health--i am slightly overweight and i try to work out 3-4 times a week.i have MS in my family but MRS's supposidly ruled this out and doctors are saying no MS red flags are being waved, which is a good thing but i am back at square 1 with no answers in sight. frustrating! it is getting to the point where this chronic pain is something i am just going to have to deal with my whole life and am starting to feel hopeless...anyone out there, please help me out!!! if anyone has any questions, or want furthur information please responnd and i will update A simple blood test can help rule out B12 and vitamin D deficiency. It is often not done routinely. I would just rule this out and KNOW exactly what your levels are. If your B12 is under 500 you may have a deficiency(most docs in the US don't diagnose deficiency unless it is under 200). Do you have a burning sensation? Best wishesDOM

"Do you have a burning sensation?" i do, sometimes---its not all the time the the rest of my leg pain. my doctor jus tstarted me on a 2 week trial of Requip for RLS...although he said he wasnt sold on it being RLS...just seems like another wild goose chase with no answers in sight...again thanks for the reply, Matt

FIRST TIME NooB! NOT SURE WHERE TO ADD THIS AS A NEW QUESTION!!!!!For the last three weeks I have been having severe pain in either the femoral artery or great saphenous vein! My 13 year old son after checking his Grays Anatomy book is not sure if there is any ligaments in these locations. The pain is immense when I stand from sitting or when I bend at the waste and than squat, turn or part my legs! Almost feels like my muscles, veins, tendons and ligaments are being ripped and dragged across nail tips. The pain rips through the top and inner thigh and shoots across under my right knee cap. Sometimes there is a sounds like a clunk and feels like something is being sling shotted across my knee and thigh. The pain started in my right leg but I am beginning to get the same in my left leg as well. This pain subsides just to start again if I bend at my knees, twist my leg the wrong way or raise my legs in bent form while standing. I can`t sleep anymore until I am totally exhausted from lack of sleep. Due to being a restless sleeper that turns and tosses there is no sense in trying to sleep. When I turn the pain just wakes me. I work out on exercise equipment at home, running walking, bike riding, and love going for walks outdoors. I am not sure if doing the earlier exercises are just worsening the effects from whatever is causing this pain.

have they taken an MRI of your brain? could it be MS? "Do you have a burning sensation?" i do, sometimes---its not all the time the the rest of my leg pain. my doctor jus tstarted me on a 2 week trial of Requip for RLS...although he said he wasnt sold on it being RLS...just seems like another wild goose chase with no answers in sight...again thanks for the reply, Matt

FIRST TIME NooB! NOT SURE WHERE TO ADD THIS AS A NEW QUESTION!!!!!For the last three weeks I have been having severe pain in either the femoral artery or great saphenous vein! My 13 year old son after checking his Grays Anatomy book is not sure if there is any ligaments in these locations. The pain is immense when I stand from sitting or when I bend at the waste and than squat, turn or part my legs! Almost feels like my muscles, veins, tendons and ligaments are being ripped and dragged across nail tips. The pain rips through the top and inner thigh and shoots across under my right knee cap. Sometimes there is a sounds like a clunk and feels like something is being sling shotted across my knee and thigh. The pain started in my right leg but I am beginning to get the same in my left leg as well. This pain subsides just to start again if I bend at my knees, twist my leg the wrong way or raise my legs in bent form while standing. I can`t sleep anymore until I am totally exhausted from lack of sleep. Due to being a restless sleeper that turns and tosses there is no sense in trying to sleep. When I turn the pain just wakes me. I work out on exercise equipment at home, running walking, bike riding, and love going for walks outdoors. I am not sure if doing the earlier exercises are just worsening the effects from whatever is causing this pain.I have this too!!!!!!!!! haven't slept in weeks!

"Do you have a burning sensation?" i do, sometimes---its not all the time the the rest of my leg pain. my doctor jus tstarted me on a 2 week trial of Requip for RLS...although he said he wasnt sold on it being RLS...just seems like another wild goose chase with no answers in sight...again thanks for the reply, MattMatt your posting was a while ago but hopefully you will see this. Did the Requip work for you? I read your original post and felt like i had written it. I am 24 and have been dealing with extreme muscle pain and tightness in my legs for two years and just got back from a neurologist who could not diagnose me and basically had no idea what was causing my pain or where to turn next. My family has a history of MS but he was convinced there was no evidence after three MRI's and an EMG. I am experiencing all of the same symptoms and wanted to reach out and see if you have gotten any answers or found any relief.

A simple blood test can help rule out B12 and vitamin D deficiency. It is often not done routinely. I would just rule this out and KNOW exactly what your levels are. If your B12 is under 500 you may have a deficiency(most docs in the US don't diagnose deficiency unless it is under 200). Do you have a burning sensation? Best wishesDOMI agree with DOM who says get the Vitamin D test. I have been dealing with terrible pain in my legs for several years. I am taking pain meds, prescription strenth anti-inflamatories, and various and assundry things for the pain. Out of the blue, after reading on a board much like this I asked the doctor to test my Vitamin D level last week. Well the doctor, herself, called me yesterday frantic becuase my Vitamin D level is only 4.3 and the low end of normal is 35 according to them. It may be that my horrible pain that seems to be untreatable may at least be in part due to this Vitamin D deficiency. It seems like too simple an explanation. Take it from me get yourself tested right away.Good Luck

I agree with DOM who says get the Vitamin D test. I have been dealing with terrible pain in my legs for several years. I am taking pain meds, prescription strenth anti-inflamatories, and various and assundry things for the pain. Out of the blue, after reading on a board much like this I asked the doctor to test my Vitamin D level last week. Well the doctor, herself, called me yesterday frantic becuase my Vitamin D level is only 4.3 and the low end of normal is 35 according to them. It may be that my horrible pain that seems to be untreatable may at least be in part due to this Vitamin D deficiency. It seems like too simple an explanation. Take it from me get yourself tested right away.Good LuckI have been tested for Vitamin D and B12. Vitamin D is normal and B12 is on the low side but not the cause according to my GP. Thanks

I have been tested for Vitamin D and B12. Vitamin D is normal and B12 is on the low side but not the cause according to my GP. ThanksIt could be RESTLESS LEG SYNDROME .gets helped by clonazepam or gabapentin .

Matt your posting was a while ago but hopefully you will see this. Did the Requip work for you? I read your original post and felt like i had written it. I am 24 and have been dealing with extreme muscle pain and tightness in my legs for two years and just got back from a neurologist who could not diagnose me and basically had no idea what was causing my pain or where to turn next. My family has a history of MS but he was convinced there was no evidence after three MRI's and an EMG. I am experiencing all of the same symptoms and wanted to reach out and see if you have gotten any answers or found any relief.Hi CTLynn...i am still having this problem and I was googling to find help and my Origional post came up and I saw your reply! Requip really didnt help. I was recently put on an anti-anxiety that has had success treating restless leg syndrome, but the dr didnt seem to think i had RSL. This did help somewhat but has not eliminated it and still bothers me every day...I am 27 yrs old now and I am the same as you, family MS history but EMG's MRI etc have ruled this out. The burning sensation in my legs is 24/7 and I am beginning to lose hope that this will ever be solved. I do have really flat feet and was suggested to go to a orthopedic=-he prescribed custom insoles for my shoes to support my arch. Have had them for 2 weeks and aside from my feet feeling better, no change to my legs. I saw a suggestion for a Vitamin D test, when I first went to my new dr he did a full blood tests and didnt seem to think anything was off but I can try again anything working for you? mmonast

This is my first time on here and the stuff you have explained is exactly the same as me. I have had the constant dull burning leg pain in both legs for about 4 years now. I am 29 year old male. It doesnt get any better or worse with exercise or if I am sitting. Sometimes walking helps,I think it just helps to take my mind off of the pain. Same as you if I stretch it feels better while I am stretching but as soon as I am done it comes right back. I have been to over 25 different doctors and to all types. The only thing they ever came up with through all of the thousands of blood test they did was that my Vitamin D level was low. I took it for awhile and it came back up but with no relief of the pain. Maybe what is wrong is eating the Vitamin D and the Vitamin D is not the cause of the pain. I have had MRI's, bone density scans, x-rays, nerve conductivity tests, circulatory tests, and that is just some of the tests I have been through and nothing. It is as if when these doctors do these tests and nothing comes up they just go I don't know I give up and ship me off to someone else so that I am not there problem any more. I have been at the point of giving up for real awhile ago. Then I met my fiance and she has made me want to live and get to the bottom of this problem because I don't want to live like this anymore. For now the only thing that helps the pain is a mixture of Hydrocodone and Tramadol together but I am tired of masking this issue and want to find the problem. And NO this is not fibromyalgia, I even tried those medicines and none of them helped. I wish I had more answers than questions but I am in the same place as you. If anyone has any helpful information it would be greatly appreciated. And when I find any answers I will be sure to let everyone know.Feeling Your Pain!

It could be RESTLESS LEG SYNDROME .gets helped by clonazepam or gabapentin .I have leg pain in the right leg, occasionally in both. Typically it runs from my buttocks to my calves. You name it I have had the test! MRI EEG ultrasound. Now I do have bulging in my L1 and L5. From cortisone shots, muscle relaxers, pain pills, therapy and massage. I am about 40 lbs overweight so this does not help. 54 years of age.Problem is it wakes me up in the middle of sleep. I just do not want to live with it any more. Doc gave me gabapentin and it helped for a while. It is now coming back. Whether sitting or sleeping it is excruciating. Sciatic, possibly vit d wish I knew.

Good morning everyone, I am new here because I have been to numerous doctors and neurologists and have no answers. here are my symptoms about 4 or 5 years ago i noticed a feeling of leg fatigue in both of my legs. the pain is located througout the calf and the hamstring, sometimes in the thighs. the pain is there 24/7 and nothing i have taken (advil etc) relieves the feeling. a way to describe this pain is they feel very very tight, similar to the feeling after you work out...when i stretch them out, i feel better but only for a few minutes. it does not affect how i walk, and i can run/do cardio workout without trouble but when i finish my first steps feel like i am floating...sometimes when i have been on a elipicatal working out when i try to step forward i lose my step, but this pnly happenes 1 or 2x a workout session. i dont have this feeling in any other body parts, just my legs. Also, i am always feeling tired and worn out. just last night i was falling asleep at 8 30 pm woke up at 6 30am for work and i feel like a zombie. sometimes this is better or worse but i generally never feel "fully charged" there isnt a certain type of the day when it feels worse or better, it doesnt matter if i am sitting at my desk at work or about to lay down i am constantly in discomfort. there are some days/nights when it is worse than uaual but its never better...ive been dealing with this every day for 4-5 years and all i want is to wake up and not deal with this every yeari have had MRI's and CAT scans and had tests where they stick needles in my legs and thighs with electricty (EMG i think) and countless blood work. everything comes back "normal". i am a 26 year old male in good health--i am slightly overweight and i try to work out 3-4 times a week.i have MS in my family but MRS's supposidly ruled this out and doctors are saying no MS red flags are being waved, which is a good thing but i am back at square 1 with no answers in sight. frustrating! it is getting to the point where this chronic pain is something i am just going to have to deal with my whole life and am starting to feel hopeless...anyone out there, please help me out!!! if anyone has any questions, or want furthur information please responnd and i will updateGreetings,This email is to follow-up on your statement listed above pertaining to your pain. I too suffer from the same as described above. I have gone through the same testing and the Doctors are stating nothing is wrong or they can not find anything. I stated to them if you can not find anything that is wrong why am I in some much pain. They wanted to say "its all in the mind." I stated to think about that and then ended up seeing a phyco. She explained to me they (the Doctors) don't experience any of the pain so how can they state that to me. I started thinking what she said is true and correct. On top of the pains, I suffer from 3rd degree burns on both legs. I have double the trouble and it appears like no one wants to listen. Alot of time I also feel hopeless, frustated, and angry about suituation that I can not change. It feels as though I am in this world all by myself.

My boyfriend has been suffering w all these same symptoms for yrs. I have been trying to get him to have his heart checked for mytral valve prolapse syndrome. He has a heart murmur and i watched a show calles mystery diagnosis where a girl suffered all the same sruff too and one dr heard her heart make a irregular beat so they checked her heart and one of her valves in her heart was backpumping some blood back into the heart chamber thus causing less bloodflow to her legs. There was a treatment that tremendously improved the pain and her life. I don't know if this is the answer but it may be.

mmonast let me know if you have found any help please . I have been suffering from the same problem you have . I have calf pain 24/7 in both calf's with the same pain and its worse if I am laying down or in a car or airplane and I always need to move my calf's. Its so painful and if I straighten my feet I will get an instant cramp in both calf's. I have no pain in thighs or hamstrings I have no numbness in feet everything is normal except in my calf's which contradicts every possible diagnoses . I am so tired all the time because I cant sleep and I am in so much pain and because the pain is so severe 24/7 that I am mentally exhausted I have no energy, and my memory is worsening I cant think of anything else but pain its complete misery. I have also seen every doctor I have tried restless legs , all the vitamins in the world lots of potassium water magnesium blah blah . I have nerve test I have had so many mri on my back and on each calf . I have had blood flow test I have had compartment syndrome test done physical therapy ect with no answers . The dr. think I am crazy and I wish I could have them in my body for 2 min and they would be shocked how painful it is every second of every day of my life . the thing is im trying so hard to find a solution not drugs but I may have no choice please help if you have found any solutions or if anyone has had these symptoms .

I know you guys feel all alone, but you're not. Many people suffer severe leg pains each contribute to possibly different things. Another thing that you can have checked is that your muscles in your calves didn't grow too big for you myelin sheath that surround the calf muscles and all our muscles sometimes they get so big that it causes intense pain and pressure because the myelin sheath can't expand any further

Has anyone gotten diagnosis for this? My son, age 25, has had chronic, bilaterial leg pain for 10 years. He describes the pain as burning like after you workout. He also complains of severe fatigue along with this. We've been to 10 different doctors, Rheumatoid, Immune, Allergist, Pain Clinic, General Practice, Chiropractors, Physical Therapist.... There seems to be no diagnosis. He's even had brain scans, blood work, x-rays, MRI, Cat scan. This leg pain is debilitating.