Thursday, May 15, 2008

Today was Jessie's second day in the EMU. For those of you that haven't had the opportunity, EMU stays can be a little monotonous. Cris is taking the night off, so I thought I would post a rare blog and list 20 Ways to Kill Time in the EMU.

1. Eat2. Take your meds3. Brush your teeth

4. Nurse shift change, take vitals5. Watch Strawberry Shortcake (twice)6. 2 minute invasion of doctors on rounds7. Color8. Watch a Barbie Movie (only once today!)9. Walk around the room - distance limited by length of the "leash" or EEG wire.10. Watch The Wiggles (3 times today . . .)11. EEG Tech (Victor today) reattaches wires12. Play DS13. Call classmates,brothers, grandparents, aunt and cousin on video phone (that was fun!)14. Snooze15. Play with flashlight16. Watch Hannah Montana (and dance and sing!)17. 50 trips to the bathroom18. Eat peanut M&Ms19. Take pictures20. Have a good visit with Dr. Vining and Diane Pillas - we may get to be discharged tomorrow!

It's been a long day. We are tuckered out. Jessie went to sleep as soon as she took her evening meds. A girl can only watch so many Wiggles, Barbie,Hannah Montana, and Strawberry Shortcake movies in 1 day! I think I'll join her soon. We are very fortunate to be here only a few days. We met a family that had been here 10 days. I don't know how they did it!

I loved your entry, Kristi! I wasn't able to go to bed last night until I had read how y'all were doing! So glad that your time there is uneventful! It warmed my heart to read what Jessie has been doing to keep her mind occupied. Thanks for sharing! Caren, Catherine and Meredith..John too!

About Me

Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain)
This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008.
This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before.
Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.