Two parents are in a race to beat a cruel disease threatening to take their child's life.

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Updated: 9:59 AM EDT Jun 7, 2017

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WEBVTT THIS LITTLE BOY IS BATTLING ANEXTREMELY RARE FATAL DISEASE.IT IS OFTEN REFERRED TO ASCHILDHOOD ALZHEIMER'S.>> FOR 13 MONTHS, PURNELL HASBROUGHT HIS PARENTS JOY.>> SEES THE SWEETEST LITTLE BOY.>> THEY ARE NOT IN A RAC TOBEAT A DISEASE THAT THREATENS TOSTEAL THEIR ONLY CHILD.>> 15 TO 18 MONTHS, HE WILL GROWDISTANT TO US.HE WILL LOSE HIS SMILE AND HISLAUGH.REPORTER: HIS PARENTS HAVE TAKENTO YOUTUBE, GOFUNDME ANDFACEBOOK TO RAISE MONEY.HE HAS AGGRESSIVE TYPE A, A GENEMUTATION PREVENTS HIS BALL --BODY FROM METABOLIZING FAT,WHICH WILL BUILD UP IN HISBRAIN.ONLY 5-10 KIDS IN THE UNITEDSTATES CURRENTLY HAVE THEDISEASE.DOCTORS SAY HE WILL NOT MAKE ITTO HIS THIRD BIRTHDAY.>> EVERYONE IS CHEERING US ON.IT HAS BEEN INSPIRING.IT HELPS US KEEP GOING.>> HIS PARENTS NEED $750,000 TOCOULD HELP FAMILIES FORGENERATIONS.>> WE WANT TO SAVE OUR SON.WE CAN TAKE COMFORT IN THEWORST-CASE SCENARIO, THAT ITWILL BE AVAILABLE FOR OTHERCHILDREN.THAT IS HOW WE WILL REMEMBERHIM.