LIVING WITH DYING

Reading has become difficult for Rich due to short-term memory issues related to his FTD.Rich shares a common diagnosis with the man in the linked article below, Howard Glick. They have become friends. Howard’s attitude and resilience have already begun to help Rich take a new look at his own disease, Frontotemporal Degeneration.

It is difficult for patients with FTD, and their caretakers, family and friends, to adjust to “the new normal” of life with this disease. The roller coaster of emotions is absolutely mind-boggling. When people ask me how Rich is doing, I usually say that it could be different from how he was doing five minutes ago.

Personally, I think my husband is “a stud” for simply living the moment-to-moment battle of FTD. It is so amazingly bizarre, unpredictable, catastrophic, tortuous and the most beautiful tribute to internal strength that I have ever witnessed… or experienced.