Friday, October 1, 2010

IVIG friday:-(

I must say that this friday was one of the worst IVIG days EVER!!! It was a fiasco from start to finish. It was a terribly long day. We got there and they called in an anesthesiologist to start his IV. It was literally a bloody mess. I ended up going home (less than 5 minutes away) since my friend was there to change my bloody clothes, and get a clean outfit for Sam. RIDICULOUS, we both had to have wardrobe changes after a doc starts an IV. Next the crazy medicine was NOT there for hours. We were supposed to start at 8am, and the medication didn't arrive until almost 1pm. Needless to say it certainly was a long day. I think just the tension and stress of the day made my back just throb. Each time we have the IVIG they check Sam's liver enzyme levels. One of the side effects of the IVIG is that it can elevate the liver enzymes, which it has been doing. It has always been mild, but this time some had been slightly worse, and some slightly better. I am thankful that some of the levels are better, and praying that they will all get better. In GOOD news Sam weighs 35lb 8oz!!! He has been doing really well in the last two weeks or so with eating! It is so wonderful to have him eating well, and feeling hungry and having a desire to eat without having any negative side effects. He has been on the protonix for a few weeks now and it seems to be doing very well to help him:-) I have only one pic that I took. My little sister gave SAm a Nintendo DS and he thinks it is the coolest thing ever, I cringe to see him use it. But I guess occasionally is ok.

Matthew

The husband our hardworking very skilled Daddy. He works so hard to keep the house, the yard, the cars, etc in order. And we are so thankful

Danielle

The wife and mommy who loves my family so much. I am so happy to be here, that God has given me a family and chosen to bless me so richly. I work as an RN in pediatrics and labor and delivery, and truly enjoy my work and my family

Samuel

Sammy Doodle Bugs our miracle boy. Multpile medical problems still being worked out. Currently diagnosed with an immune deficiency, irritable bowel syndrome and also a platelet agreggation disorder (bleeding disorder). There are also some temperature control issues and recently some respiratory distress issues. He is a such an amazingly strong little boy and goes through so much. I am so thankful for him and for the blessing he is to our lives. God truly has a plan for this little guy

Sophia

This is our Little Sweet Pea- she is such a joy. She is so active and curious. She loves to run and jump and play. And boy does she like to TALK! She talks all the time:-)

About Me

I am a Christian wife, a mother, and a nurse totally thankful to the Lord for giving me the blessing of having a family. Our son Sammy has an immune system deficiency and therefore has had multiple illnesses, he gets IVIG every four weeks, and sees multiple specialists. He also has a bleeding disorder, and some undiagnosed GI problems. I share his story in the hopes that we can encourage someone who is walking where we have walked with our Sammy. Sophia is our second little miracle baby, who is a fiesty little lady. She is full of life and love. And our newest miracle Preston, born Aug 31st of 2011. He is such a tremendous joy to watch thrive and grow. Come along and join us on this wonderful journey. I would love to hear from you here or in my email: mssweetpea2000@yahoo.com