Tuesday, 31 January 2012

I have always been a loner preferring to spend my time alone although when
I was at school I did a have a few girls I hung around only one of which I would
call a friend. I never had a boyfriend while I was at school and to be honest I
was not interested in boys when I was at school.

After leaving school I still had no interest in boys but of course that
did change over time and when I was in my early 20’s I decided to sign up to a
dating agency and went on one date with some guy who I really didn’t click with
but the next day I had a phone call from a guy named Tim and we around to go
out the following night which was a Thursday night and I knew right away that
this was the guy for me.

We went to pizza hut and neither of us could eat much we both were so nervous,
the date was the 6th June 1983 and 3 months later he asked me to
marry him and of course I said yes we had an engagement party in November and
married the following September.

Tim decided to try a dating agency because like me he is also very shy
and a loner.

Monday, 30 January 2012

I have decided that for the next few weeks at least Mondays
will be Tim’s day the day of the week that I share with you some things about
my husband I decided this while driving to Jessica’s place this morning in fact
I composed the entire post in my head on the drive there………….I will kick this
off with asking this question is there and opposite of “rose coloured classes”

I think everyone has heard the saying seeing things through
rose coloured classes but is there an opposite of that.Why you ask well I will tell when I met Tim
he was a canvas machinist he made caravan annexes, tents, truck tarps stuff
like that and he was really good at it and loved the job because he was so good
at it he took a lot of pride in his work.

However if you were to asked him now days about that job he will tell you that he didn’t
like the job and that he was miserable there and never got on with anyone……………………..now
this is true but only for the last couple of years he worked there. The first 10
years were great the last few years not so much.

He also blames me for him staying there so long as he said I
wouldn’t let him quit but that isn’t right either yes I was nervous about him
leaving the job but only because I didn’t know what would happen after he did. Now
he did end up leaving after 15 years I remember is that he came home one
evening and was not in a very good mood and I told him to quit to that we would
manage somehow but no he didn’t. He did, however, take some long service leave
and while on long service leave he got a job driving hire cars which for those
who don’t know that is like driving a taxi except it is an a nice unmarked car
and they do not pick up people on the side of the road I will talk more about
that in later posts…………….

Sunday, 29 January 2012

Today my mum did a cheats baked lunch
now what is a cheats baked lunch you ask well it's when you use
frozen roast veggies istead of fresh the ones we used were these ones
they are alright but not the same as homemade baked veggies. The
potato swirls were really nice and we did those because Sue doesn't
like the roast veggies, for meat we had a roast lamb.

We set the table up in the carport and
ate there there was only 10 adults and the 3 babies there so not to
many, Sue and I cleanned up before we left so mum wouldn't have to do
it afterwards.

While we were there mum opened a bottle
of wine it was called “Love” it was a fruity dessert wine and I
loved it which is a big thing as I do not drink wine but I ended up
drinking half a bottle and since being home I have followed it with 2
voka cruisers pineapple flavoured so I am a bit tipsy at the moment
but that's ok as I do not drink very often and will not have anymore
to drink tonight I know when to stop, how I am feeling at the moment
is good very relaxed. I will have to have a look at the bottle shop
for the wine.

Saturday, 28 January 2012

Yesterday was one busy day I wanted to
read some blogs when I got home yesterday afternoon but my internet
was playing up and I couldn't get online so didn't
happen...............oh well it was the first time it stuffed up in
ages and I am back today.............

So after posting this I am going to
read some blogs leave some comments as I know you all love my
comments because I am just sooooooooooooo what I don't know but I am
something and I am loved or at leasted liked by many................

So as I sit here and write this and
look to my left what do I see well outside it is raining again and on
telly is Scooby Doo now if you are wondering why I am watching Scooby
Doo well it's because Leo is here and he loves Scooby Doo.........

No I just have to find someone to drive
Jessica and Leo back to her place around 1pm this afternoon but first
she needs someeone to take her to pick up Blain and then drive all of
them back to hers why because he car is off the road and Tim took our
car to work...........

Why is her car of the road well it's
because on Wednesday when Tim tried to change the spark plugs and
leads he found on plug had been cross threaded and one lead was
falling apart so now the car has to go to the mechinic on Thursday
and she doesn't want to drive it while it is like it is. It is
backfireing and stalling and shudders and to be honest I do not like
the idea of her driving it either. I had told her I would drive her
home but that was before Tim took the car to work. He keeps saying it
is fine to drive Jess's car and if that is the case then he should
had taken her car to work........

What do I have planned for the day,
reading blogs leaving comments and doing some washing and when Jes
and Leo have gone home I will catch up on some of my recorded
programes...................

Thursday, 26 January 2012

Happy Australia Day
everyone........................in this house it isn't just
Australia's birthday it is my darling husband Tim's birthday and
today he turned 51..................

So to celebrate we have had the girls
and grandkids over for lunch along with Kathy's man Michael and my
sister Sandra and niece Temika and of course my mum and
dad..............

Lunch consisted of snags, bacon,
rissoles and my brother honey soy chicken and a pasta bake and a
potato bake with a chocolate birthday cake. The rissoles tasted awful
and even the dog didn't eat them but everything else was yummy and
most of the food was eaten.

I was up at 6.30am baking the cake and
then doing the pasta and potato bakes and cleaning the house again, I
have swept the lounge room floor about 7 times today 6 times before
anyone arrived and yes I know it was just family but I wanted the
house to look good.

It was loud and a bit chaotic but it
was good although after about an hour Kathy and Tasha had to leave
the noise was getting to them and I have to be honest I was also glad
when everyone had left and the house was kind of quite again, I say
kind of as we have Leo here again tonight and he is a hand full at
the best of times......................lol

Tuesday, 24 January 2012

We it’s true when I left high school I was asked a lot what do you want
to do now and I never had an answer but in the end I went to Tafe to do a
secretarially course but only because my friend Cathy wanted to do it and we
went together to the Tafe and both applied for the course and I got into it and
she didn’t. Which I think annoyed her at the time as I really didn’t care one
way or the other if I got into the course.

After finishing the course it was like what now back in those days it
was Centrelink whohelped people find
jobs so I registered with them and got sent to some job interviews I did get a
job for 17 weeks which was supposed to give meexperience which would make it easier to get a job.

So I did that and then thought ok I really do not want a job I just want
to get married and have children…………which I ended up doing………………..

Monday, 23 January 2012

I saw this question on someone’s blog and thought it would
make an interesting topic for a blog; yes I am always on the lookout for blog
topics. So who would I like to haunt well I have given it a bit of thought,
said there are many people who have pissed me off over the years but not enough
for me to come back and haunt……………………..lol

I would like to hang around and watch over my family, as I
believe my pop does but that isn’t haunting someone, haunting them is trying to
scare them in my opinion………………

I do think it would be cool to be a ghost though and be able
to go anywhere and spy on people could do the same thing though if I was
invisible………………………..lol

Sunday, 22 January 2012

wolfhirschhorn

What I am about to share with you I got from Craziness Abounds over at Crazy World. I read
this and my heart broke. I couldn't believe that in a country that
claims so many freedoms, our system would deny a child a better way of
life. I can't comprehend in a such a politically correct society that we
would treat any individual, especially a child to this kind of
behavior. I am horrified. I hope you will be too and will help me spread
this around. I don't care how many of your blogs I go to and see this.
The more the merrier. This is on a blog called

I
am going to try and tell you what happened to us on January 10, 2012,
in the conference room in the Nephrology department at Children’s
Hospital of Philadelphia.

We arrived for our regular Nephrology
visit with Amelia’s doctor who has seen her for the last three years.
She examines Amelia and sends us for labs. I ask about the transplant
and she says we have about six months to a year until she needs one.
She tells us she reserved the conference room and when we get back from
labs, we can meet with the transplant team and he can tell us about
the transplant process.

After the labs, Amelia falls asleep in her stroller and we are called
back to a large room with a screen and about sixteen chairs. Joe and I
get comfortable and leave a space between us to fit the stroller. After
about five minutes, a doctor and a social worker enter the room. They
sit across from us but also leave a space between the two of them.

The doctor begins to talk and I listen intently on what he is saying.
He has a Peruvian accent and is small, with brown hair, a mustache and
is about sixty five years old. He gets about four sentences out ( I
think it is an introduction) and places two sheets of paper on the
table. I can’t take my eyes off the paper. I am afraid to look over at
Joe because I suddenly know where the conversation is headed. In the
middle of both papers, he highlighted in pink two phrases. Paper number
one has the words, “Mentally Retarded” in cotton candy pink right under
Hepatitis C. Paper number two has the phrase, “Brain Damage” in the
same pink right under HIV. I remind myself to focus and look back at
the doctor. I am still smiling.

He says about three more sentences when something sparks in my brain.
First it is hazy, foggy, like I am swimming under water. I actually
shake my head a little to clear it. And then my brain focuses on what he
just said.

I put my hand up. “Stop talking for a minute. Did you just say that
Amelia shouldn’t have the transplant done because she is mentally
retarded. I am confused. Did you really just say that?”
The tears. Oh, the damn tears. Where did they come from? Niagara Falls.
All at once. There was no warning. I couldn’t stop them. There were no
tissues in conference room so I use my sleeve and my hands and I keep
wiping telling myself to stop it.

I point to the paper and he lets me rant a minute. I can’t stop
pointing to the paper. “This phrase. This word. This is why she can’t
have the transplant done.”
“Yes.”
I begin to shake. My whole body trembles and he begins to tell me how
she will never be able to get on the waiting list because she is
mentally retarded.

A bit of hope. I sit up and get excited.
“Oh, that’s ok! We plan on donating. If we aren’t a match, we come from
a large family and someone will donate. We don’t want to be on the
list. We will find our own donor.”
“Noooo. She—is—not—eligible –because—of—her—quality– of
–life—Because—of—her—mental—delays” He says each word very slowly as if I
am hard of hearing.
“STOP IT NOW!” The anger is taking over. Thank God. Why did it take so long to get here?
The social worker is writing some things down. Not sure what. She
casually gets up to take a call. My eyes follow her to the phone and I
see Joe’s face. His mouth is open, his face is pale and he is staring
straight ahead of him at the white board.
Rage fills the room. I point in his little, brown pudgy face. “Do not
talk about her quality of life. You have no idea what she is like. We
have crossed many, many road blocks with Amelia and this is just one
more. So, you don’t agree she should have it done? Fine. But tell me who
I talk to next because SHE WILL HAVE IT DONE AND IT WILL BE AT CHOP.”
I see the social worker quickly writing down what I just said. Joe hasn’t moved. Amelia is still asleep.

The social worker decides to join the conversation. “Well, you know a
transplant is not forever. She will need another one in twelve years.
And then what? And do you have any idea of the medications she will need
to take to keep her healthy?”
I speak through gritted together. “YES, I HAVE DONE ALL MY RESEARCH.”
She smirks a little. “Well, what happens when she is thirty and neither
of you are around to take care of her. What happens to her then? Who
will make sure she takes her medications then?”
In a voice that mimics hers, I snort, “Well, what happens if you die
tomorrow? Who will take care of your children? Your responsibilities at
work?” She breathes in and her eyes widens. “Right!” I throw at her.
“Neither of us can predict the future and we shouldn’t try. But if
Amelia does not have this transplant she has no future!”
The doctor interrupts. He puts his hands up and tries to take a stern
voice with me. “These medications she has to take after the transplant,
they are very dangerous. They can cause seizures. We have to get the
dose exact. They may cause brain damage.”
“DO OTHER CHIILDREN WHO HAVE A TRANSPLANT TAKE THIS MEDICATION?”
“Yes, but it is different for her. She is already brain damaged and mentally retarded.”
He pauses as if he is choosing his words carefully. “I have been warned
about you. About how involved you and your famliy are with Amelia.”
The devil himself could not have produced a more evil laugh. “Ha! Warned! That is funny! You have no idea…”
I am beginning to realize I want this over with so I can move onto the
next person who will help me with the transplant. So I say the words
and ask the questions I have been avoiding.
“So you mean to tell me that as a doctor, you are not recommending the
transplant, and when her kidneys fail in six months to a year, you want
me to let her die because she is mentally retarded? There is no other
medical reason for her not to have this transplant other than she is
MENTALLY RETARDED!”
“Yes. This is hard for me, you know.”
My eyes burn through his soul as if I could set him on fire right
there. “Ok, so now what? This is not acceptable to me. Who do I talk to
next?”
“I will take this back to the team. We meet once a month. I will tell
them I do not recommend Amelia for a transplant because she is mentally
retarded and we will vote.”
“And then who do I see?”
“Well, you can then take it the ethics committee but as a team we have
the final say. Feel free to go somewhere else. But it won’t be done
here.”
They both get up and leave the room.
I look at Joe who is sobbing trying to get the stroller and Amelia’s
backpack. I break down with him before we head to the parking garage.

I hope you are disturbed, troubled, distressed, and pissed off when you
read this. I hope you share it with many, many people. Although I did
not know this yesterday, this is very common and happens across the
map. I have researched and researched and researched transplants and the
MR, as they are called in the medical journals, and it is appalling.
We are in the year 2012 and my child still does not have the right to
live, the right to a transplant, because she is developmentally delayed.

If this bothered you as much as it bothered me, if you can imagine the
pain this family is going through, help me spread this around.

After having almost lost my daughter last weekend this breaks my heart. I
can't imagine someone looking you in the face and saying Let your child
die, because she is not like others! which is exactly what this putz
just told this family to do. God help us.

Friday, 20 January 2012

1. You must post 11 random things about yourself.2. Answer the questions the tagger set for you in their post.3. Create 11 new questions for the people you tag to answer.4. Go to their blog and tell them that you've tagged them.5. No stuff in the tagging section about "you are tagged if you are reading this." Legitimately tag 11 people!!

Now 11 random things about me:

I never get bored

I love being home alone

I wear hearing aids

I wear glasses for reading

I have brown eyes

I have small hands

I love English television shows

I can spend ages in a book store

I like to watch traffic go by

I have one tattoo

Long hair gives me headaches

What Is one song that discribes your life I don't think there is one song as many songs fit my life depending on the stage my life is at.
Are you good at making new friends? Nope have never been good at it which is why I don't have any friends Where did you grow up?Here in Newcastle in fact I live less then 5 minutes from where I grew up
What is the silliest prank you ever played on someone? I have never been one to play pranks
If you could have a $10,000 shopping spree to one store, which store would it be and how long would it take you to spend the $10,000?Harvey Norman and maybe an hour
Do you exercise regularly? Nope but I should
Who would you want to play you in the movie about your life? Sally Field
Who is your celebrity crush male/female David Boreanaz
What is your favorite thing to drink? Pepsi Max
What is the weirdest thing you will ever admit to having done in the past?I don't do weird things
If you had only 24 hours to live, what would you do?

Spend it with my family

Now I have to thing of 11 questions so what should they be....................

Wednesday, 18 January 2012

I have only one regret in life and it may seem
like a silly one but so be it…………………………….

My one and only regret is that I have never lived
by myself I went from living with my parents to living with my husband and if I
do change one thing I did before I got married I would have lived on my own.

Although if I could change anything I would be
worried that by doing so would change the life I have now and I happen to love
the life I have now……………………but still I do think I would have liked living on my
own…………..lol