Principal Investigator(s):Schulz, Richard, et al., University of Pittsburgh. University Center for Social and Urban Research

Summary:

Resources for Enhancing Alzheimer's Caregiver Health
(REACH) was established in 1995 to conduct social and behavioral
research on interventions designed to enhance family caregiving,
particularly in minority families, for persons with Alzheimer's
Disease and related disorders. Baseline data (ICPSR 3253) were
collected through randomized clinical trials at six sites: University
of Alabama-Birmingham, The Research and Training Institute of the
Hebrew Rehabilitation Center for Aged in Boston, University of
Tennessee-Memphis, University o... (more info)

Resources for Enhancing Alzheimer's Caregiver Health
(REACH) was established in 1995 to conduct social and behavioral
research on interventions designed to enhance family caregiving,
particularly in minority families, for persons with Alzheimer's
Disease and related disorders. Baseline data (ICPSR 3253) were
collected through randomized clinical trials at six sites: University
of Alabama-Birmingham, The Research and Training Institute of the
Hebrew Rehabilitation Center for Aged in Boston, University of
Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto
Health Care System and Stanford University, and Thomas Jefferson
University in Philadelphia. Interventions such as psychoeducational
support groups, behavioral skills training programs, family-based
systems interventions, environmental modifications, and technological
computer-based information and communication services varied by site.
This collection contains baseline data along with follow-up data at
6-, 12-, and 18-month intervals from each site with focus on the
impact of the various intervention strategies on psychological
distress, health status, health practices, and health care
utilization. Also included are follow-up batteries, transition
batteries (placement, bereavement, discontinued), and data reporting
missed visits. Parts 1 through 5 contain screening data and responses
to a short mental status questionnaire. Parts 6 through 34 contain
baseline data along with follow-up data at 6, 12, and 18-month
intervals and cover activities of daily living, anxiety, and caregiver
health and health behaviors along with sociodemographic information.
Also included are care recipient medications and sociodemographic
information. Parts 35 through 40 contain tracking data and also
include an examination of interventions.

Access Notes

These data are freely available.

Dataset(s)

WARNING: Because this study has many datasets, the download all files option has been suppressed, and you will need to download one dataset at a time.

WARNING: This study is over 150MB in size and may take several minutes to download on a typical internet connection.

Universe:
Family caregivers living with persons with dementia for at
least six months in Birmingham, AL, Boston, MA, Memphis, TN, Miami,
FL, Palo Alto, CA, and Philadelphia, PA.

Data Types:
survey data

Methodology

Sample:
Convenience sample with recruitment strategies varying at
each site.

Data Source:

personal interview

Extent of Processing: ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of
disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major
statistical software formats as well as standard codebooks to accompany the data. In addition to
these procedures, ICPSR performed the following processing steps for this data collection:

Created online analysis version with question text.

Version(s)

Original ICPSR Release:2003-07-03

Version History:

2006-09-26 Value labels have been added.

2006-03-30 File CB3678.ALL.PDF was removed from any
previous datasets and flagged as a study-level file, so that it will
accompany all downloads.

2005-11-04 On 2005-03-14 new files were added to
one or more datasets. These files included additional setup files as
well as one or more of the following: SAS program, SAS transport, SPSS
portable, and Stata system files. The metadata record was revised
2005-11-04 to reflect these additions.