Growing up with a love for Chicago’s architecture, Hugo had aspirations of becoming an architect. His body, however, had other plans. Diagnosed with Spinal Muscular Atrophy, he had to take some time off from college, and when he returned, he decided to switch his major to Spanish with hopes of working at a nonprofit.

Hugo loves working with families of newly diagnosed patients. His main goal is to ensure that they feel supported and know that MDA is there to help them get the best care possible. As a bilingual employee, he’s able to help MDA’s Spanish-speaking population, and is passionate about identifying resources for families abroad.