is the story of one family's journey through life with a very special child with Down syndrome and a complicated medical history and how we have learned to DANCE through the tulips.

Tuesday, May 10, 2011

A Trifecta

Chloe's got a trifecta! A nasty toe nail infection, a cold and teething. Wait, if you throw in the persistent rash on her face and butt, what does make it then???? LOL Anyway, we went to the doc yesterday and he gave her some oral antibiotics for the toe and recommended 2ce daily soaking of it in hopes of avoiding a trip to the podiatrist where they would have to dig out the nail (ewwww). Hopefully we can avoid that! I'm including a picture - don't look at it if you're squeamish. Chloe remains in unbelievably good spirits considering she looks like a mess. She's a trooper.

Hi Chloe!My name is Jenna and I came across your site. U are a precious and special child of god. U are such a brave, courageous, strong, and determined fighter. U are a happy, full of life, full of spunk, full of smiles, full of joy, love, and an inspirational hero.Keep on smilen, beautiful earthly angel!I was born with a rare life threatening disease.www.miraclechamp.webs.com

Pray for Dillon

About Me

I am a 44-year-old woman whose life changed when I learned my third child would be born with Down syndrome. Right away I knew that our lives would be changed forever, I just never in my wildest dreams could have imagined it would be like this. This is my family's story.
In the months preceding the start of this blog, starting when Chloe was just 6 days old, she had 7 hospitalizations, 1 open-heart surgery, and 1 g-tube surgery. She was the youngest child at our hospital to ever be put on CPAP at home for Severe Obstructive Sleep Apnea. She had a TINY opening to her airway and therefore frequently suffered from upper respiratory incidents. Chloe also had GERD and was being considered for a Nissen Fundoplication. But she is an AMAZING fighter and the happiest girlI've ever known!