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We Don’t Need a Cure for Autism – And Pushing One Is Really Messed Up

I babysat for an autism support group and listened pityingly as parents described how hard it was to have a child on the spectrum – thinking nothing of the fact that those children were right there listening.

I begged my mom to take my autistic sister, Caley, and me to an autism cure event, ignoring the fact that my sister herself wasn’t interested in doing so.

Later, I went still further and led a fundraiser at my high school to raise hundreds of dollars for Autism Speaks, an organization that pushes for a cure for autism.

As the sibling of an autistic person, I felt it was my duty to do these things to show my support for her and others like her.

If you’re advocating for an autism cure, you’re making the same mistake that I once was.

I know it’s because you care about the autistic person in your life and want to make their life as easy as possible. But the best way to support autistic people is to listen to them, not assimilate them.

This goes against almost everything we’ve been socialized to believe, so I want to really unpack and address the following five objections that many people who support a cure for autism assert.

I can only hope that if you do harbor these beliefs, you’ll be open to considering this information and changing your position, as I once did.

1. Autistic People Are Suffering and Need a Cure

It is true that a lot of autistic people suffer.

But what they suffer from is not so much being autistic as living in a society that is not friendly to autistic people.

A society where different means incompetent and neurodiversity is a foreign concept.

The people who enforce these beliefs are not only telling autistic people that their very existence is wrong, but they are participating in oppression.

Moreover, the idea of curing autism isn’t as simple as it seems from the outside. Autism is a developmental disorder, meaning people on the spectrum are autistic their whole lives.

They know no other way of being – it’s part of who they are.

Autism isn’t something that you can get rid of it without changing who a person is at their core. Autism is a neurological difference that inherently shapes an autistic person’s identity, perspectives, dreams, and desires.

As my sister put it: “Whenever you tell an autistic person they should be cured, you’re telling them that they shouldn’t be them.”

Unsurprisingly, hearing that is hurtful, and constantly getting these messages from society is enough to pulverize many autistic people’s concepts of self-worth.

2. But What About the Autistic People Who Can’t Communicate and Are Trapped in Their Own Worlds?

Okay, there are a couple of big assumptions I need to address here.

As a general rule, everyone communicates, even non-speaking autistic people. Because behavior is communication.

When an autistic child I was caring for threw himself to the ground after I tried to take him into the waiting room, he didn’t use words. But he definitely communicated that he did not want to go in that room.

Our society expects everyone to communicate in the same way that we do, and those who don’t are ignored.

Perhaps the problem isn’t with autistic people’s communication, but with those who refuse to acknowledge what they’re saying.

The other assumption is that autistic people are trapped in their own worlds.

Yes, many autistic people report having imaginary worlds, but that isn’t a bad thing. It’s an escape from a society that is often not friendly to them and a world that can be – even to the people in the neurotypical majority – scary or just plain boring some times.

And seeing the beauty in parts of the world that most of us don’t even notice, like the shimmering dust motes that dance through the air or the mesmerizing spin of fan blades overhead, isn’t a bad thing either.

Those of us who are neurotypical could learn something from that.

What’s more, autistic people do not magically inhabit a different world. They’re right here on Earth, with you and me, and to act like they’re not is not only incorrect, it’s hurtful.

And to address the core argument, there’s this assumption that because they’re different from us in ways most neurotypical people could not imagine being, so called “low functioning” non-speaking autistic people must want a cure.

And, if we as a society are doing our job right, they are just as capable for loving themselves for who they are as anyone else.

3. But Shouldn’t We Be Pushing for a Cure on Behalf of Those Who Do Want One?

People keep misunderstanding this critical point, but there is no cure for autism.

It doesn’t exist!

No matter how much money is poured into it, it doesn’t seem like it’s going to exist any time soon – at least not in the form that people imagine.

Looking at research, it’s apparent that we’re more likely to see a preventative measure than a magic “cure” pill.

The leading candidate is a genetic screening in-utero, in which case, as with Down Syndrome, we could see an option for an autism “cure” through abortion of fetuses suspected to have autism.

And fundraising for this – the only current viable option – rather than fundraising to help families, sounds a lot like eugenics to me – every person on the spectrum’s worst nightmare.

The second side of this problem is that there are reasons many autistic people want cures, and those reasons are societal in nature.

Throughout most autistic people’s lives they have been told that they are lesser.

They’ve been taken to fundraisers to raise money to “fix” them, their parents talk about what a burden they are right in front of them, and when they dare to be themselves in public, they’re greeted with disapproving stares.

If you lived this life, wouldn’t you want to be cured of that thing that you’ve been told all your life that you need to be cured of?

For some autistic people, the answer is yes. But the realistic solution, which already exists, is not an imaginary cure, but helping them love and accept themselves for who they are.

It’s helping them see the strengths being autistic provides, rather than only hammering the weaknesses down their throats.

In short, acceptance is the cure.

4. But Donating Money Towards Research for a Cure Isn’t Harmful, Right?

Unfortunately, it is harmful.

The mere fact that others find autistic people’s lives so faulty that they raise money for a cure is hurtful to a lot of people on the spectrum.

More than that, money donated towards prevention/cures is money that doesn’t go to help the autistic people already here.

So What’s an Autism Ally to Do?

Don’t despair – there are loads of organizations you can donate to that actually do focus on services and education to benefit autistic adults and children alike.

The Autistic Self Advocacy Network is a great example of one such organization. Best of all, unlike most autism organizations, this one is led by autistic people themselves and does a far better job of representing their interests as a result.

Another great organization is The Arc/The Autism NOW Center, which prioritizes autistic individuals’ needs, rather than what our society thinks they need.

So the next time you feel the inclination to walk and raise money to help autistic people, you can walk with pride if you’re supporting one of those groups.

2. Work to Make Society More Autism-Friendly

If you’re part of a business, some autism organizations offer the ability to train your business in working with people on the spectrum.

Initiatives like this do a great job of breaking down the societal barriers autistic people face.

Check into your state or country’s autism organizations or local autism support group to see what’s available in your area for this.

Creigh Farinas is a Contributing Writer for Everyday Feminism. She’s a graduate student pursuing a Master’s degree in Speech Language Pathology and who already has a B.A. in Psychology and a post-baccalaureate in Communication Sciences and Disorders. Absolutely none of those things, however, gave her understanding of autism as a whole, let alone disability rights. Instead, all her knowledge was gained learning from people on the autism spectrum and with other disabilities themselves, particularly her sister, Caley, who is Autistic and has dysgraphia and anxiety disorders. Creigh is still learning more every day, and her sister Caley reads, edits, and approves everything that Creigh writes about disabilities. You can see more of Creigh and Caley’s writing at Autism Spectrum Explained.

Caley Farinas is a Contributing Writer for Everyday Feminism. She’s a recent graduate with a Bachelor’s in Public Health who writes about the effect society has on the “disabled”. She enjoys reading and being with her sister. Caley writes from her experience as an Autistic woman with dysgraphia and anxiety disorders. Because of these disabilities, it is hard for her to write and she gets assistance from her sister Creigh in writing/typing. That said, any words that you see attributed to her are her own, and she edits and approves anything her sister Creigh types. You can see more of Caley and Creigh’s writing on their website Autism Spectrum Explained and their Facebook page.