A 10 year old girl living with Heterotaxy - Polysplenia... Join me in my quest to find answers to my questions as I learn about heterotaxy.

Tuesday, February 17, 2009

Learning Disabilities Not Otherwise Specified (LD NOS)

Along with the Attention-deficit/hyperactivity disorder (ADHD) Chloe was diagnosed with Learning Disabilities Not Otherwise Specified (LD NOS).

What is LD NOS? This is a disorder in learning that does not meet specific criteria for any specific Learning Disorder. A child with a Learning Disorder might have problems all 3 areas (reading/language (Dyslexia), Math (Dyscalculia), and Writing (Dsgraphia)). Chloe is only 6 years old and is in Kindergarten so I think it’s hard to see what areas she might have a specific Learning Disorder in. I guess that is way they labled her with LD NOS. Anways, she will be having further testing in June and she will also be seeing a Neurologist in April.

Chloe is a pleaser and tries very hard but sometimes she does have trouble following instructions, concentrating and retaining what she just learned. I read that learning disabilities are caused by abnormality in the nervous systems that affects receiving, processing, or communicating information. I asked the Doctor if she thought Heterotaxy could cause Learning Disorders. She said, no. Children diagnosed with a Learning disability may also be diagnosed with ADHD. This is what happened in Chloe’s case. I also learned that LD NOS and ADHD may run in families.

It is very important detected and treat Learning Disabilities or ADHD early. This will help prevent low self-esteem and behavioral problems in ones child. I believe in positive reinforcement with Chloe. I always try to point out the good and never the negative. I firmly do not believe in medicating Chloe and creating new health issues for her. Chloe already has enough health issues to deal with.

If you think your child may have a learning disability you should have them evaluated by educational and mental health a professional for which includes educational and psychological testing. The team will also talk to the parents, the child and may even consult with your child’s teacher in order to help them with the diagnosis.

I highly recommend that any child diagnosed with learning issues, add/adhd, especially with other physical issues, be properly evaluated for Tick-Borne diseases as an underlying cause. See LymeInduced Autism and www.ilads.org. Tickborne diseases cause nervous system dysfunction resulting in many of these issues. Our whole family got sick and it took years to figure out- we were lucky - since our children have been treated, they've regained huge ground in their IQ (son went from 107 IQ to 131) and doing well in school. These kids all would have been learning disabled. Google and read up - these illnesses are getting missed, and children are suffering for a lifetime instead of for a duration of 3-5 years which it takes to properly heal from these illnesses in severe cases. - Mother with PHD in neuropsychology - also - google Dr. Brian Fallon and neurocognitive impacts of lyme, columbia university.

I have a son who is 20 yrs old and was diagnosed with LS NOS at 17. I to agree that it is very frustrating for us only because we can see the frustration and disgust in him and hear it in his voice. He is in his third year of college and let me tell you he is struggling and it is so upsetting to see that he is ready to give up. I to wish there was more to do for this disability. I also wonder how it will affect him in his adult years to come.

Translate

Pages

Quotes

With awareness comes understanding and with understanding comes change.

From a special friend in Canada (Laura)

“God must trust that you are the right mother to care for her, to love her and to teach her. God only gives us what we can handle...or from what we can grow and learn. ...perhaps you will help one other person and that is you’re calling as a mother of a very special and unique little girl. Who knows? But I believe god only gives us special little ones when we are special too. Hold onto that my dear friend.”

Search This Blog

A Mom Fighting For Answers

My 9 year old daughter was born with Heterotaxy Polysplenia with Funtioanl Aslpenia.

I blog because I believe that one person can spread the word. My hopes are that someday the medical community will have answers to this multifaceted syndrome that my daughter and other children have. I blog because it helps me to face the reality of what it means to have a child with a syndrome. I blog for the parents searching for other children like their own to have some type of an insight of what it is like to have a child with Heterotaxy Syndrome. The hardest thing to understand is that no 2 children are the same. Children born with Heterotaxy Syndrome are so different from each other.

I am first generation Portuguese American. My parents came here from Sao Miguel Azores Portugal about 43 years ago for a better life. I have been married for 17 years. I have 2 wonderful children. I have had my ups and downs but through it all the challenges that life has brought me made me who I am today. I believe what doesn’t break you can make you stronger. Yes, at times I can be a complex person. I will be the first one to admit it. I am stubborn, dogmatic, passionate, caring, ambitious, impulsive, enthusiastic, (at times) adventurous, and hard working. But, if it wasn’t for those qualities I would never be able to find the answers that I am looking for.

Follow by Email

There was an error in this gadget

DISCLAIMER

It is not my intention to provide specific medical advice to users of this website or any other website; instead I provide users with information for people to understand what it is like having a child with a disability, syndrome, or disorder.
I strongly urge users to consult with a qualified health care professional for diagnosis, treatments and answers to their personal medical questions.

READ

Please make special note, most of the information in this site was found on the net or in pamphlets. Any copyright infringement is purely accidental, I try to add links where necessary. Any conflicts, infringements, or violations pointed out to me will be corrected. Thank You.