Discussions By Condition: I cannot get a diagnosis.

In Trouble

I several symptoms that our recurring and cannot find a doctor who understands any of it. I am a "post gastric bypass" patient. I had the Roux-en-y procedure November of 2004. As of current I have lost 170 pounds. I did not have any forms of Diabetes prior to surgery, but did have hypoglycemia episodes. There were other health conditions that made me make up my mind to have the surgery. Currently I am having "Severe Hypoglycemia Episodes", as well as Hyperglycemia. I also was diagnosed with Hashimotos and Graves Disease. My lowest glucose level on my meter is 11 and my highest is 286. I do not ingest simple carbohydrates. The only form I ingest are through milk products like Mozarella Cheese and cottage cheese. I have not ever been able to tolerate sugarm breads, pasta or any other form of carb since my surgery. I become very ill with dumping syndrome. I have had several test, and have seen several Endocrinologists, only to be told they don't know what it is or what to do. The most recent as told me that I have an enzyme problem, but she has not performed any test and wants to wait until she receives records from my previous Endo, who is not cooperating. The hypoglycemia occurs no matter what I ingest. It doesn't even have to be caloric to cause my sugars to drop. I have researched this condition, and have found articles on this. They call it Nesidioblastosis. I just can't get a doctor to give me any sound diagnosis or advice. I am scared and very desperate. It happens all day and all night. If anyone has any information or can help me in anyway, I would be so grateful.