Hi, i am now 17 +. i had the normal blood tests at 15 weeks. i returned home to a note passed in the door last week by the midwife. the midwife had arranged for an appointment at the hospital the following day.

i went to he hospital and they tried to talk me into having an amnio. i could not have it done to me or the baby, i suppose that im scared.

im not pregudise, just ignorant. if there is anyone out there who could give me some advice then i am listening.

i have emailed mencap almost a week ago and appart from a confirmation of them geting the email i have had no response.

well i do know the blood test is not very good and can give you a misleading result. it depends if your willing to bring up a downs child and if your willing to termnate the pregancy.what did the midwife say to you?

Wed Jun 21, 2006 4:43 pm

Niki5592

ED BABE

Joined: Sat May 13, 2006 7:11 pmPosts: 719Location: Cannock, Staffs

There are other non invasive tests you can have done, I'm sure the midwife will be able to advise you about this. I am opting for private nuchal screening where they measure the fluid on the baby's neck, they combine this with a blood test to check the HCG and PAPP A levels in my blood, if the HCG is high and the PAPP A is low then this also indicates a higher risk of Downs. They will also scan the baby to look at the nasal bone because if a nasal bone is detected then this reduces the risk of Downs. Not sure if this is of any help. Good luck anyway babe. xxx

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Wed Jun 21, 2006 4:51 pm

sarahthebump

ED newbie

Joined: Wed Jun 21, 2006 4:01 pmPosts: 3

1:140

there is no question of me having an abortion. the midwife said that i could wait until my next scan and have the amnio then. im 28 and i had a look on the internet the ratio that they have given me puts me in the same group as a 39 year old.

i cant have an amnio as i dont want to lose this baby. the midwife said that the chance of a misscare is 1% the internet says upto 3% somewhere. i have visited so many sites that i can not remember where.

having a douwns baby will be different. i hope that i would manage.

its my baby no matter what. i did want a girl more than a boy, but now as long as its breathing thats ok by me.

Sarah

Wed Jun 21, 2006 4:54 pm

summyya

ED MEGA BABE

Joined: Tue Feb 14, 2006 7:05 pmPosts: 1532Location: hull

my sister had a downs child she lovely , she was only 19 when she had her . amaber is now at school in year 1
sammy xx

Wed Jun 21, 2006 5:31 pm

hollyu

ED HOTTIE

Joined: Fri Dec 30, 2005 9:28 amPosts: 7149Location: Woking, Surrey

A piece of advice DO NOT LOOK UP ANYTHING ON THE INTRENET!!!!!!!!!! it always scares the s*** out of you and usually wrong. Goodluck

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Wed Jun 21, 2006 5:35 pm

clairey76

ED BABE

Joined: Tue Jan 31, 2006 12:01 pmPosts: 608

Hi, i had a nuchal fold scan at 12 weeks which came back as 1:78 risk of down syndrome (i am 29 years old). I was so shocked and upset. Didn't want to wait for blood test at 16 weeks or amnio so after speaking to my consultant i decided to go for a cvs at a larger city hospital. I was soo scared and upset that i was putting my baby at risk. The risk of miscarriage after having cvs is 2%. Slighly higher that an amnio. I felt dreadful signing the consent form. The midwife was wonderful she went through everything with me and husband. A consutant (who was a lectuer in fetal medicine) performed the procedure. It was slightly uncomfortable. I couldn't look at the screen ( it was performed using ultra sound machine). After procedure the consultant scanned the baby close up and i saw a little haert beating away. That was done for reasurrance. The following day (only 24hours later) I got a telephone call to say that my baby did not have down syndrome and that baby was normal. 2 weeks later got it all in writing as they looked for other chromosome abnormalities. Found out i was having a baby girl too!! Everything went really well and i was so relieved afterwards. It was so difficult making the decision for cvs and was very stessful. Don't think i have ever felt so upset and emotional in my whole life.
I think if you are not going to terminate your pregnancy if result came back positive for down syndrome then you don't need to have amnio as theres no point. Unless you just want to know and not wait till your due date. Only you can make the decision. I hope everything goes well for you. Best wishes. x

Wed Jun 21, 2006 5:42 pm

rubyred

ED MEGA BABE

Joined: Thu Jan 26, 2006 7:42 pmPosts: 1408Location: Essex

Hi, i had the odds 1 in 90 and my baby was fine, i didn't have an amnio as i'd alreADY had a miscarriage not long before then.
I wouldn't of had a termination. and if i did have an amnio the results wouldn't have got to me until i was 22 wkks preg, i thought this was wrong.
The thought of termination terrified me. I only would have if the baby was severly disabled and no quality of life.
I just left it to fate.
I do think now when i look at my lo, what if i had an amnio and i did miscarry he wouldn't have been here today.
For me i made the best decission. It is something you do need to think hard about.
There have been several girls on here with high risk results and there babies were fine.
There was also a boy with downs at my daughters nursery he went onto school and is doing very well. I just thought of him.
take care
x

Wed Jun 21, 2006 6:04 pm

nini

ED MEGA BABE

Joined: Wed Apr 12, 2006 1:21 pmPosts: 1171Location: Gloucester

I've had my blood tests come back with a 1 in 130 chance of downs. I'm having an amnio tomorrow at 10am. Please don't think bad of me but I have to know for sure. I've been told I can either wait two weeks for my results or pay a fee and get them back within 48 hrs. I'm not sure how much the fee is but my OH wants to pay so i'm not getting myself more stressed out durin the 2 week wait.

I'm so confused! Doesn't getting a one in however number chance meen your risk is low? I know that outa how many hundred my test was out of i only got 1 and my midwife said i was fine because thats the absolute lowest i could have got!

Thu Jun 22, 2006 1:59 pm

rubyred

ED MEGA BABE

Joined: Thu Jan 26, 2006 7:42 pmPosts: 1408Location: Essex

nini+bump wrote:

I've had my blood tests come back with a 1 in 130 chance of downs. I'm having an amnio tomorrow at 10am. Please don't think bad of me but I have to know for sure. I've been told I can either wait two weeks for my results or pay a fee and get them back within 48 hrs. I'm not sure how much the fee is but my OH wants to pay so i'm not getting myself more stressed out durin the 2 week wait.

noone would think bad of you, its your decission, i didn't have one as i didn't see the point as i wouldn't have terminated. I thought to have an invasive test for just to know yes or no, for me was pointless as i rather not risk a life as i would have kept my baby if he/she was downs.
Everyone is different and for me having my miscarriage not long before mean't i just couldn't have an amnio.
You have to do whats best for you and your family.
i would never judge but i didn't get offered an amnio until i was 20 weeks preg. (i had a huge bump). For me i made a choice and obviously it all turned out fine, but i did prepare myself that i could have a downs child. I did not know when my lo was born whether he had downs, i just never asked.
Good luck, hope all goes well
xx
i know its a difficult position your in. no one can understand unless got the same results and also the way the hospital treat you.
i felt they treated me like i was carrying an alien, not a nice experience but all good in the end.

Last edited by rubyred on Thu Jun 22, 2006 2:08 pm, edited 1 time in total.

Thu Jun 22, 2006 2:04 pm

rubyred

ED MEGA BABE

Joined: Thu Jan 26, 2006 7:42 pmPosts: 1408Location: Essex

lil_hev1004 wrote:

I'm so confused! Doesn't getting a one in however number chance meen your risk is low? I know that outa how many hundred my test was out of i only got 1 and my midwife said i was fine because thats the absolute lowest i could have got!

Anything under 1 in 250 is high risk.most people get 1 in thousands. if you get less than 250 you get offered an amnio whatever your age.x

oooh thanks for clearing that up! well i must have got one in thousands then! Because i remember the midwife being shocked at how low i'd got, she just laughed and said well there's no problem there then!
Also does anyone know what the tests at 24, 28 and 34 weeks are for?

Thu Jun 22, 2006 2:08 pm

honeysxx

ED frequent user

Joined: Wed Jun 28, 2006 2:22 pmPosts: 153Location: Glasgow

im sorry you had to go through this, i had the exact same letter posted through my door a few weeks ago. my risk was a bit lower than yours, but i was offered the amnio too..

I decided to go just for the detailed scan, which came back clear, so ive been put into low risk now... but i know its not 100% accurate, so i still have the worries there. I was also advised the risk of misscariage was 1 in 100 with the amnio, so i didnt take it.

what i DID find comforting was that the woman that did my scan explained that they take certain detials from you.. Height, weight, protein in urine, and feed these into a computer... and they contact the top 5% of all pregnant woment (thats when the risk is 1 in 250). she made it sound so much more like a precaution than a problem, and it helped ease me so much more...

I was 1 in 250 to start because I was 35, so I had a nuchal scan which has to be done before 14 weeks and that changed my risk to 1 in 1100, that along with blood tests and normal scans which check for heart defects and growth problems put my mind at rest enough to not go through with the amnio.