This is how life feels topeople with EB

EB-CLINET: An InternationalNetwork.

This is how life feels to people with EB

Welcome at EB-CLINET!

EB-CLINET is a clinical network of EB centres and experts, which aims at establishing EB centres worldwide to improve medical care for people with EB through exchange of knowledge and experience about EB and, by providing a basis for clinical trials, to accelerate the way to a cure for this disease.

Thank you to all participants. We look back at four wonderful, exciting days which would not have been the same without your active participation.For detailed information about the conferences please click here.

They guide medical professionals as they care for people with EB as well as patients in their involvement in their own care. CPGs are designed to help ensure that clinical care is guided by evidence gained from science and by expert opinion.

EB House Austria

DEBRA International

DEBRA International is a worldwide network of national groups working on behalf of those affected by EB. See information about appropriate medical care and research into EB as well as links to the national DEBRA groups around the world.