State Intellectual and Developmental Disability Agencies' Service Trends

Data Note
No. 38, 2012

Source: The National Survey of State Intellectual and Developmental Disabilities Day and Employment Services (Institute for Community Inclusion, State Data Project)

The National Survey of State Intellectual and Developmental Disabilities Day and Employment Services is a longitudinal study commissioned by the Administration on Developmental Disabilities to analyze community-based day and employment service trends between FY1988 and the present for individuals with IDD and closely related conditions. The survey is administered to state IDD agencies and is designed to provide the following information: trends in the number of people served in integrated employment, facility-based employment, and facility-based and community-based non-work programs; trends in the number of individuals waiting for services; funding sources that are being used to support day and employment services; and the allocation of funds across day and employment services.

In FY2010, an estimated 566,188 individuals received day or employment supports from state intellectual and developmental disability (IDD) agencies. This number grew from 458,650 in FY1999, a 23.4 percent increase. The estimated number of individuals supported in integrated employment services increased from 108,296 in FY1999 to 113,937 in FY2010, a 5.2% increase. State investment in supports continues to emphasize facility-based and non-work services rather than integrated employment services. Figure 1 shows the trends in the percentage of people served in integrated employment and facility-based and non-work settings between FY2004 and FY2010.

Major findings include the following:

National estimates suggest that there has been modest growth in the number of individuals in integrated employment services since 1988.

The percentage of individuals receiving integrated employment services has declined from a peak of 24.7 percent in 2001 to 20.1 percent in FY2010.

Growth in integrated employment primarily occurred between the mid-1980s and mid-1990s, and there has not been a meaningful change in the number of people in integrated employment since 2001.

Growth in community-based non-work services has continued for states that report on this service. Nationally, the reported participation in community-based non-work (CBNW) services has grown steadily for states that report it as a service, from 18.7 percent in FY1999 to 47 percent in FY2010.

There is large variation across states in participation in integrated employment, ranging from 5% in Alabama to 89% in Washington (Table 1).

Figure 1. Estimated IDD Agency Service Distribution by Year

[Figure 1 shows the trends in the percentage of people served in integrated employment and facility-based and non-work settings between FY2004 and FY2010. In FY2010, an estimated 20.1 percent of individuals receiving day supports from state IDD agencies received integrated employment services. In 2009, it was 19.90%. In 2007, 20.80% of individuals received integrated employment services. In 2004, the number was 21.10%.
In FY2010, 79.90% of people were served in facility-based and non-work settings. In 2009, it was 80.10%. In 2007, 79.20% of individuals were served in facility-based and non-work settings. In 2004, the number was 78.90%.]

*Percents displayed represent estimates for the number of people served in integrated employment nationally including all 50 states and Washington, DC.

This is a publication of StateData.info, funded in part by the Administration on Developmental Disabilities, U.S. Department of Health and Human Services (#90DN0216).

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