Transcription

2 What is Multiple Sclerosis An autoimmune disease that affects the central nervous system (CNS) The immune system mistakenly attacks the body s myelin and cause the nerves to be damaged causing scarring The scarring begins to slow and interrupt the transmission of nerve impulses, resulting in the symptoms of MS

3 MS Affects the Brain, Spinal Cord and Optic Nerves

4 MS Brain Lesions

5 Bilateral Optic Neuritis

6 ADEM

7 Transverse Myelitis

8 Common Symptoms of MS Tingling or numbness in one part of the body Problems with balance and/or coordination Muscle weakness in one part of the body Fatigue Spasticity Change in vision Fatigue Slurred speech or stuttering Bladder or bowel problems Cognitive changes Depression or other emotional changes

9 Temporary and Permanent Symptoms Temporary Symptoms Due to exacerbations or flareups May be due to new symptoms or the aggravation of old ones Associated with inflammation and demyelination in the CNS Treated with corticosteroids by mouth or by IV Permanent Symptoms Inflammation that has resulted in permanent scarring or damage to the nerve cell Occurs when the symptoms tend to remain. Treatment options are based on each individual patient symptoms

10 Deciding When and If to Treat Numbness, tingling and very mild weakness is frightening and disconcerting to the child, but generally resolves on its own without medication Medication is only prescribed for those acute attacks that are significant enough to interfere with the child s function at home or at school

11 Example 1 17 year old Shawn went outside to shovel the snow. When he came back in he notices right hand was numb. Should the Neurologist be called? The next day the numbness is still there. He attempts to drink a cup of coffee and the drops the hot cup onto the floor! Should his neurologist be called now? What if after a few hours the numbness is gone and it periodically comes and goes?

12 Example 2 Kelly wakes up and notices that her right eye is blurry. It last for 10 minutes and then her vision returns to normal. Should she call her Neurologist? Kelly wakes up to extreme left eye pain and double vision; she can not see out of that eye and the light at school hurts her eye; Should she call her Neurologist now?

13 Managing Acute Attacks Corticosteroids Man-made hormone given to reduce inflammation Can be given by mouth (Prednisone) or by IV (Solumedrol) 3-5 day course of high dosage Given to improve symptoms and shorten recovery time Corticosteroids do not change the long-term course of MS or have any other long-term benefits

15 Modifying the Disease Course Currently there are 6 medications that modify the immune system in order to reduce immune activity in the treament of Relapsing-Remitting MS Avonex Betaseron Copaxone Rebif Plegridy Extavia

16 MS or not MS? MS can cause symptoms in many parts of the body, however, it is not the cause of everything that occurs! You can get the same viral illnesses and assorted problems that all people your age get Fevers or infections may temporarily worsen MS symptoms, but will improve as the fever is under control

18 Examples of Symptoms that May be Due to an Exacerbation Bladder or urinary tract infection Constipation Loss of control of bladder or bowel In addition to other neurologic symptoms discussed earlier!

19 MS Fatigue Most common complaint Caused by a variety of factors Sleep disturbance Medications Lack of energy Identify the source Talk with your healthcare provider (i.e. for sleep aids, medications for fatigue, or PT exercises)

20 MS and Heat Intolerance Overheating can increase fatigue, weakness and visual disturbance Drink plenty of fluidswater is the choice! Use fans, airconditioning or spray bottles Exercise in a cool environment Wear commercial cooling garments-vests, headbands, neckbands Pre-cool before activities Do a cool bath or shower following activity or exposure to a hot environment

22 When to go to your local ER Immediately! Difficulty Breathing Difficulty Swallowing Thoughts of Suicide Sudden Onset of Cognitive Change New Onset Seizures *These symptoms require immediate attention, the Neurology Team can be notified after the patient is stable!

23 Choosing When to See Your Neurology Team When symptoms are noticed, make a mental/written record of the time! If the symptoms last more than 24 hours or if the patient is getting worse, notify the Nurse Practitioner for advise and recommendations! If the symptoms are better within 24 hours or less, record the date and time and notify the team at your next appointment!

What is Multiple Sclerosis? Gener al information Kim, diagnosed in 1986 What is MS? Multiple sclerosis (or MS) is a chronic, often disabling disease that attacks the central nervous system (brain and spinal

Information about medicines for multiple sclerosis Information about medicines for multiple sclerosis What is multiple sclerosis? 1 Multiple sclerosis (MS) is a lifelong disease that affects your brain

Understanding Multiple Sclerosis Tim, diagnosed in 2004. What Is Multiple Sclerosis? Multiple sclerosis (MS) is a neurologic disorder that affects the central nervous system (CNS). The CNS includes the

St. Luke s MS Center New Patient Questionnaire Name: Date: Birth date: Right or Left handed? Who is your Primary Doctor? Who referred you to the MS Center? List any other doctors you see: Reason you have

Information About Medicines for Multiple Sclerosis Information About Medicines for Multiple Sclerosis What is multiple sclerosis? 1 Multiple sclerosis (MS) is a lifelong disease that affects your brain

Optic Neuritis Your doctor thinks that you have had an episode of optic neuritis. This is the most common cause of sudden visual loss in a young patient. It is often associated with discomfort in or around

1 It is the National MS Society s mission to mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS. The National MS Society, Greater Northwest

FOR MS RELAPSES Stepping toward a different treatment option LEARN WHAT ACTHAR CAN DO FOR YOU As a person with multiple sclerosis (MS), you know firsthand the profound impact MS relapses can have on your

Transverse Myelitis ISBN 978-1-901893-57-1 A guide for patients and carers The Brain and Spine Foundation provides support and information on all aspects of neurological conditions. Our publications are

Choices Symptoms MS-UK believes that based on experience, people cope best when they look at what is happening, rather than what might be. MS can cause a long list of symptoms. This list is not exhaustive

Which injectable medication should I take for relapsing-remitting multiple sclerosis? A decision aid to discuss options with your doctor This decision aid is for you if you: Have multiple sclerosis Have

Multiple sclerosis (MS) Summary Multiple sclerosis (MS) is an incurable disease of the central nervous system that can affect the brain, spinal cord and optic nerves. The effects of MS are varied and unpredictable,

CNS DEMYLINATING DISORDERS Multiple sclerosis A Dutch saint named Lidwina, who died in 1433, may have been one of the first known MS patients. After she fell while ice skating, she developed symptoms such

Multiple Sclerosis: What You Need To Know For Professionals What will I learn today? The Basics: What is MS? Living with MS: A Family Affair We Can Help: The National MS Society What MS Is: MS is thought

Multiple Sclerosis (MS) Purpose/Goal: Care partners will have an understanding of Multiple Sclerosis and will demonstrate safety and promote independence while providing care to the client with MS. Introduction

Multiple Sclerosis Multiple Sclerosis (MS) is a disease of the central nervous system (brain and spinal cord) that affects approximately 400,000 men and women in the prime of their lives. In its most serious

What is Multiple Sclerosis? Multiple Sclerosis (MS) is a disease of the central nervous system (including the brain and spinal cord) in which the nerves degenerate. A disease of the central nervous system

Great Ormond Street Hospital for Children NHS Foundation Trust: Information for young people Multiple sclerosis When young people are told that they have a diagnosis of Multiple Sclerosis (MS) they usually

April 2013 Experts at your fingertips call now CBT IN THE CITY Check out our new services in you local area contents. A message from Susie, Information Multiple Sclerosis CBT can make a difference on the

IF YOU ARE RECEIVING (NATALIZUMAB) TREATMENT WITH TYSABRI FOR RELAPSING-REMITTING MS Read the patient information leaflet that accompanies the medicine carefully. 1 This brochure is a supplement to the

Use of oral steroids in Multiple Sclerosis Information for patients and carers Neurology Department Aberdeen Royal Infirmary What are steroids? The steroids used to treat Multiple Sclerosis (MS) relapses

Headaches in Children A headache is one of the most common complaints of children and teenagers. Fussiness, crankiness and not being able to sleep may be the only signs of head pain in children who are

KIDS GET MS TOO: A GUIDE FOR PARENTS WITH A CHILD OR TEEN WITH MS A Publication of the National Multiple Sclerosis Society 2014 TABLE OF CONTENTS Acknowledgements 3 Section One Introduction and Overview

Choices MS symptoms Read me MS symptoms MS-UK believes that based on experience, people cope best when they look at what is happening, rather than what might be. MS can cause a long list of symptoms. This

Disease Modifying Therapies for MS The term disease-modifying therapy means a drug that can modify or change the course of a disease. In other words a DMT should be able to reduce the number of attacks

MayoClinic.com reprints This single copy is for your personal, noncommercial use only. For permission to reprint multiple copies or to order presentation-ready copies for distribution, use the reprints

The MS Disease- Modifying Drugs Gener al information Current as of October 30, 2009. This online version is updated as breaking news requires. If you have downloaded and printed a copy from the web, please

ALL ABOUT FATIGUE www.almirall.com Solutions with you in mind WHAT IS IT? Fatigue is defined as feeling a lack of physical and/or mental energy, often experienced as exhaustion or tiredness. It is a very

AVONEX/BETASERON/COPAXONE/EXTAVIA/GILENYA/REBIF/TYSABRI Applicant must be covered on an Alberta Government sponsored drug program. Page 1 of 5 PATIENT INFMATION Surname First Name Middle Initial Sex Date

How to Receive Your CE Credits Read your selected course Completed the quiz at the end of the course with a 70% or greater. Complete the evaluation for your selected course. Print your Certificate CE s

Disease Modifying Therapies for MS The term disease-modifying therapy (DMT) means a drug that can modify or change the course of a disease. In other words a DMT should be able to reduce the number of attacks

Oxford University Hospitals NHS Trust Department of Neurology Natalizumab (Tysabri) for Multiple Sclerosis Information for patients page 2 What is Natalizumab and what is it used for? Natalizumab is an

Choices Fatigue Fatigue is one of the most common invisible symptoms of MS and one which can have a major impact on all aspects of life. For some people it is the symptom that affects them the most. It

AVONEX What is Avonex? Avonex is the brand name for a disease modifying treatment for people with MS. The active ingredient is interferon beta 1a, which comes in a solution or powder, and is given by injection.

Teriflunomide (Aubagio) 14mg once daily tablet Exceptional healthcare, personally delivered Your Consultant Neurologist has suggested that you may benefit from treatment with Teriflunomide. The decision

Clinically Isolated Syndrome (CIS) Knowledge for the Present, Hope for the Future An educational resource from the International Organization of MS Nurses (IOMSN). This publication is supported by an educational

Vision Health: Conditions, Disorders & Treatments NEUROOPTHALMOLOGY Neuroophthalmology focuses on conditions caused by brain or systemic abnormalities that result in visual disturbances, among other symptoms.

DavidC.Spencer,MD Complementary and alternative medicine in multiple sclerosis WHAT IS COMPLEMENTARY AND ALTERNATIVE MEDICINE? Although it is sometimes hard to define, complementary and alternative medicine

BROCHURE ACTHAR: ANOTHER WAY TO TREAT MS RELAPSES IN ADULTS LEARN WHAT ACTHAR MAY DO FOR YOU Please see the Important Safety Information on pages 12 15 and the accompanying full Prescribing Information.

Accommodation and Compliance Series Employees with Multiple Sclerosis Preface The Job Accommodation Network (JAN) is a service of the Office of Disability Employment Policy of the U.S. Department of Labor.

Diagnosis THE BASIC FACTS MULTIPLE SCLEROSIS MS is a disease of the central nervous system. The central nervous system consists of the brain, spinal cord, and the optic nerves. Surrounding and protecting

News Release Intended for U.S. Media Only Bayer Receives FDA Approval for BETACONNECT First and Only Electronic Autoinjector in Relapsing-Remitting Multiple Sclerosis (RRMS) Treatment Whippany, N.J., September

Horowitz Lyme-MSIDS Questionnaire The Horowitz Lyme-MSIDS Questionnaire is not intended to replace the advice of your own physician or other medical professional. You should consult a medical professional

NEW PATIENT HISTORY QUESTIONNAIRE Physician Initials Date PATIENT INFORMATION JHH# DOB# AGE HOME PH CELL PH DAY PH EMAIL Who is your REFERRING PHYSICIAN? (The doctor who referred you to Johns Hopkins Neurology.)

Hand Foot and Mouth Disease Information The information below is from the NHS website http://www.nhs.uk/conditions/hand-foot-and-mouth-disease/pages/introduction.aspx Is it the same as foot and mouth disease?

An introduction to Relapsing remitting MS What does it mean when you are diagnosed with relapsing remitting MS? There are three main types of MS: relapsing remitting MS, primary progressive MS and secondary

DON T GET OR GIVE THE FLU THIS YEAR THANK YOU Vaccination is the only protection. www.immunisation.ie BE SURE. BE SAFE. VACCINATE. FLU VACCINE 2013-2014 Healthcare workers prevent the spread of flu and

An introduction to multiple sclerosis for people who have recently been diagnosed When you have just been diagnosed with multiple sclerosis, you will probably have many questions about the condition and

OAB AND YOU Pacific Urology (925) 937-7740 pacificurology.com Have you recently been diagnosed with overactive bladder (OAB)? Let me help you learn more about your OAB symptoms and possible treatment options

1. Describe the causes of pain experienced by people with multiple sclerosis. Pain experienced by people with MS can be either neuropathic (arising directly from nervous system dysfunction) or may be musculoskeletal,

Dallas Neurosurgical and Spine Associates, P.A Patient Health History DOB: Date: Reason for your visit (Chief complaint): Past Medical History Please check corresponding box if you have ever had any of

Eastern Health MS Service Tysabri Therapy Information for People with MS and their Families The Eastern Health MS Service has developed this information for you as a guide through what will happen to you

Page 1 of 6 Chemotherapy Side Effects Worksheet Medicines or drugs that destroy cancer cells are called cancer chemotherapy. It is sometimes the first choice for treating many cancers. Chemotherapy differs