Center for Marfan Syndrome and Related Aortic Disorders

The Center for Marfan Syndrome and Related Aortic Disorders is the
largest of its kind in California and among the nation's leading
centers for the diagnosis and treatment of Marfan syndrome. We ensure
that patients with Marfan syndrome and aortic disorders have access to
comprehensive diagnostic and management services from specialists in
cardiology, cardiovascular surgery, ophthalmology, orthopedics, and genetics.

A thorough evaluation for the Marfan syndrome and related aortic
disorders would include:

Echocardiogram with Color/Doppler and/or CT Angiogram of the
chest and abdomen

An appointment with one of our
cardiologists who specializes in Marfan syndrome and related aortic
disorders which includes:

A thorough evaluation of the
Stanford Echo/CT Angiogram and/or outside films the patient
brings with them

A review of detailed medical and
family history

An evaluation of outside medical
records

A complete physical examination.

If any of these evaluations have been performed recently elsewhere,
please bring this to our attention when scheduling your appointments
with us.

Do you accept self-referrals?

Yes, at present we accept both physician and self-referrals.

Are you able to determine over the phone as to whether I should be seen?

Unfortunately, we are not in a position to diagnose anyone over the phone.

If you suspect that you have the Marfan syndrome or an aortic
disorder based on what you have read or on the recommendation of your
physician or other affected family members, then it would be
appropriate to be seen for an initial evaluation. If you already
carry a diagnosis of Marfan syndrome or a diagnosis of a known aortic
disorder and wish to be seen, this is certainly appropriate.

Will my insurance cover appointments through the Stanford Center for Marfan Syndrome?

There are so many different insurance companies and different
policies written by a company that if you have questions about your
policy, we ask that you call and speak with your insurance company
directly.

If you belong to an HMO or other group health care plan that
requires you to get an authorization from your primary provider,
please contact that individual. A written authorization from that
physician authorizing each appointment and test that you will need is
required before we can schedule your appointments.

You can fax these to us ahead of time by sending to
650-724-4034. Should your insurance company or primary care
physician have questions regarding your appointments, they may call
650-725-8246 for additional information.

No, because we have not formally evaluated you yet. It would be
presumptuous on our part and not in your best interest to either place
or lift any physical restrictions imposed on you by other physicians.

For Patients

Stanford Health Care (formerly Stanford Hospital & Clinics) is
known worldwide for the advanced patient care provided by its doctors
and staff. We also provide a wide range of guest services and
amenities to our patients and visitors. Learn more about preparing for
a hospital stay, billing and financial services, and our other support
programs in Patients &
Visitors.

PREPARE FOR YOUR APPOINTMENT

Please bring any relevant medical records and family information to
your appointment, such as:

Call us to make an appointment

Resources

For Health Care Professionals

PHYSICIAN HELPLINE

Stanford Health Care (formerly Stanford Hospital & Clinics)
provides comprehensive services to refer and track patients, as well
as provides the latest information and news for physicians and office
staff. For help with all referral needs and questions visit Referring Physicians.