About Me

I am a girl who fell in love, got married and wanted to have a regular ol' ordinary family. What I ended up getting was everything but.
This blog chronicles our journey as a family who was blessed with a very special child.
From the day we found out that she had only a 5% chance of living to the present, life has been a true roller coaster of emotions. And most surprisingly, more rewarding than I ever thought possible.
Click here to contact me.

The Harlie Fund

Due to the requests of many caring people, our family set up a legal trust fund, "THE HARLIE FUND" to help with Harlie's care. You may click here for more information or click on the donate button above.

The Harlie Crew

We invite each fan of Harlie to join the following initial crew members and commit to make a monthly contribution to The Harlie Fund.

With Christy's willingness to share, we have worried about, prayed for and rejoiced in the accomplishments of a remarkable girl. The members of The Harlie Crew together show their support by contributing monthly. If you would like to join us, please call Bill Jeffries at (804) 288-1672.

Thursday, July 5, 2007

So, we had another helmet adjustment today. Her helmet is definitely hard work on all parties involved!!! But, hopefully, once her head shape starts to improve, it will become easier. Harlie had a good day today. She was very happy and playful. She is ticklish now, which is fun. She only vomited once, which is great. Kate (Hannah’s mom) and Kate’s mom came to visit us today. We had a really good time.

Oh, I have a funny Murphy story I thought I’d share. He takes computer class at preschool. It is once a week and the teacher is Mr. Walt. Every now and then Murphy will say or do something we haven’t seen before. So, we say, “Murphy, who taught you that?” or “who showed you that”, etc. And, very often, (like unusually often) he will answer, “Mr. Walt”. And whatever the thing is – is not computer related! So, it is a joke between Tom and I that we really want to meet this Mr. Walt. He sure does know a lot.

Well, the other night Tom was putting Murphy to bed and Murphy told Tom that his stuffed lion farted. I’m laughing just thinking about it. Tom was surprised and said, “Murphy, where’d you learn that word?” And, you guessed it, Murphy said, “Mr. Walt”. I wish you could hear the way he says Mr. Walt. It is too funny. I don’t know where he comes up with this stuff. Kids sure do make life interesting. Well, that’s it for tonight. Talk to you later!

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Murphy

Murphy is 13 and is in eighth grade. He is constantly making us laugh with his crazy sense of humor and wonderful imagination. He is a great big brother and adjusted with no problems to this role. He has been an easy kid to raise from the get-go (despite the fact he entered this world 5 weeks ahead of schedule).

Harlie Caroline

Harlie is 10 and is in fourth grade. She has Goldenhar Syndrome, VACTERL Association and a lung defect that required the removal of 2 lobes on the right side. After over 50 surgeries (4 of them open heart), she is remarkably age appropriate. She is the sweetest, funniest little girl I've ever met. You can't help but fall in love with her.

Cooper

Cooper is 8 and is in third grade. He is a very talkative, high energy and affectionate little guy. He is all boy and he is a very funny kid. We are so lucky to have him!

Rooney

Rooney was born on February 5, 2012. He has been a wonderful addition to our family. He is such a great little dog and I just can't imagine life without him now! I love him so much!!!