I have cancer of the vulva and have been advised to have 35 days (Monday - Friday for 7 weeks) of radiation.Has anyone with EDS ever had this treatment as I don't know how it will affect my skin, which bruises so easily and my bleeding problem. By the way I am 88.Please let me know as soon as possible. Direct to gjudge@biugpond.net.au if you can.sincerelyGwendolen Betty Judge in QueenslandSee More

I finally had an appointment with the vascular clinic about my femoral aneurysms (as opposed to cerebrovascular clinic, who I see regularly). The surgeon said there was a slight enlargement since my previous CT scan. She has had some previous experience with EDS patients and reiterated what my mothers cardio surgeon told her after her second bypass," it's like trying to sew tissue paper." So surgery is out of the question unless my arteries rupture.I had a flow diverting stent implanted in my brain at the start of the year, so now I have a nickel-titanium stent to complement my 53 platinum coils. I'm surprised I can get through the airport metal detector without triggering it. The surgery went well except now when I cough or sneeze my head explodes. This perplexes my neurosurgeon who has never heard of a similar symptom from this procedure. I suspect a vascular spasm is hammering my new stent against something. I bought some dextromethorphan tablets while travelling in Thailand to reduce the incidence of coughing. Since the stent implantation I have been prescribed Plavix (clopidogrel) and aspirin, which thin the blood and reduce platelet formation, and now I bruise like a baby and bleed like a stuck pig. This doesn't go well with farm life's high incidence of skin punctures and abrasions.After doing some barbed wire fence repairs the other day I came back to the house looking like I'd been in a knife fight.I'm having a hard time keeping my spirits up as the effects of aging exacerbate many of my symptoms. ( although age is stiffening up my soft tissue and I dislocate less easily now)While researching my condition I've found several sites with more information than I've been able to locate easily in the past.I'll link them in case someone else doesn't want to plough through google results.https://www.omim.org/entry/130020https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-ehlers-danlos-syndromeshttps://ehlers-danlos.com/See More