Daily updates on Eli

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3/6/13

Eli had a productive yet very busy day today which started as soon as he woke up with a nice breakfast that he ate BH without any medication and with no pain. Then it was off to CHLA where there was a long wait just to get started but once he got started things seemed to be moving along. They drew his blood and as expected he needed a blood transfusion. So for some reason they felt that since he would need a transfusion and being that it was already 1130AM and the transfusion until they bring the blood and actually start takes about 3-4 hours they put our DR visit to take place later in the day and true to CHLA style they of course didn’t tell us that. So Bassy and I both sat there for many hours waiting to speak to the DR who we called, emailed etc to find out when she would be in and didn’t get answered.

To make a long story short Bassy had to leave and therefore when the DR finally did walk in at 330PM we had to conference Bassy in for the meeting as it was car pool time. Basically we got a good idea of what the next few weeks and months should beezrat hashem look like and while its not going to be fun at all we have full faith that it will have the outcome that we are expecting a full recovery for Eli IYH. It doesn’t seem based on Elis blood #s from today that he will be ready for chemo on Monday but we know doctors have been wrong and hopefully this will be one of those times as the sooner we get it over with the sooner he is home and the more time he has to recuperate before Pesach. Its looking as of now that surgery will hopefully be the week after Pesach.

Knowing that as we continue on this long road of Elimelech Ben Basyas treatment and subsequent FULL recovery is going to get harder before it gets easier we will be asking of anyone and everyone to continue to have him in mind in hopes of having no pain, side effects or anymore bumps in the road. We look forward to the day that we can close this blog with a big sign. CASE CLOSED FULL REFUA ACCOMPLISHED

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For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.