Acquired brain injury

Acquired Brain Injury Managed Clinical Network (ABIMCN)

The National Managed Clinical Network (NMCM) for Acquired Brain Injury (ABI) is a Scottish National Network established by the National Services Division (NSD) in 2007. Its aim is to improve access to and the quality of services for children and adults with Acquired Brain Injury (ABI).

Chest Heart and Stroke Scotland (CHSS)

CHSS improves the quality of life for people in Scotland affected by chest, heart and stroke illness, through medical research, influencing public policy, advice and information and support in the community.

IIH UK

IIH UK aim to provide the best possible support network for IIH sufferers and their families, to raise awareness and understanding of IIH within the general public and medical community and to champion and support medical research into finding a cure for the condition.

Shine

Shine is a charity dedicated to supporting individuals and families who face the challenges arising from spina bifida and hydrocephalus. We provide specialist support to anyone living with these conditions, as well as to parents, families, carers and professional health and social care staff. With a community of 75,000 individuals, families, friends, and professionals, Shine also provides a platform for members to share achievements, challenges, and information on living with spina bifida and/or hydrocephalus

Stroke Association

The Stroke Association is the only UK wide charity solely concerned with combating stroke in people of all ages. The Stroke Association funds research into prevention, treatment and better methods of rehabilitation; campaigns to increase knowledge of stroke and improve stroke services; and act as a voice for everyone affected by stroke. Stroke survivors and family members are supported directly through its Life After Stroke Service. The Stroke Association also provides a range of informational publications, a stroke helpline and an information service for anyone affected by stroke.

The Brain Tumour Charity

The Brain Tumour Charity is the UK's largest dedicated brain tumour charity. We fund scientific and clinical research into brain tumours and offer support and information to those affected, whilst raising awareness and influencing policy.

United Kingdom Acquired Brain Injury Forum (UKABIF)

Aims to promote understanding of all aspects of Acquired Brain Injury and to provide expert input to policy makers, service providers and general public. Website contains a directory of brain injury rehabilitation services.

Advocacy

Patient Advice and Liaison Service

The Patient Advice and Liaison Service (PALS) offers confidential advice, support and information on health-related matters. They provide a point of contact for patients, their families and their carers.

Brake

Brake, the national road safety charity, works to stop death and injury on the roads and to care for people affected by road crashes. Brake also runs educational initiatives and campaigns for tougher laws against dangerous drivers. Brake produces a range of support literature for people bereaved and injured at these particularly devastating times. This literature is distributed by the police forces following every fatal crash and often after a serious injury. Brake also runs a helpline, through which its highly trained operators can support families and friends following the aftermath of a road crash. The helpline provides both emotional support as well as practical information on the many procedures that follow a death on the road. The helpline also acts as a signposting service directing callers to counselling services, trauma therapists and self-help groups.

Neurological Alliance

The Neurological Alliance is a wide range of neurological charities which have come together to make life better for people in the UK with a neurological condition. Our aims are to raise awareness of neurological conditions and their impact; inform and influence policy makers about the needs of people with neurological conditions; secure the highest standards of service and improved care for people with neurological conditions; promote research and the dissemination of information about neurological conditions.

Royal Association for Disability And Rehabilitation (RADAR)

RADAR is a co-ordinating body with over 500 members associations. It acts as a pressure group on central and local government. RADAR is concerned with every aspect of disibility, but is particularly involved with access, education, employment, holidays, housing, mobility and social services.

Care Quality Commission

Our job is to check whether hospitals, care homes and care services are meeting government standards. Website provides a comprehensive directory of care homes, care in the home services and other primary and secondary health services

Enrych

ENRYCH supports adults with a physical disability to engage more fully within their local communities. We provide this service through our UK branches by "matching" our members' requirements to the skills and interests of volunteers and personal assistants.

Carer and family support

Brain Injury is BIG

Brain Injury is BIG is a support group for people who have loved ones with devastating brain injuries. They may be severely disabled, in a persistent vegetative state, minimally aware/conscious or locked in.

Care Inspectorate

The independent regulator of social care and social work services across Scotland. Regulates, inspects and supports improvement of care, social work and child protection services for the benefit of the people who use them.

Carers UK

CRUSE Bereavement Care

Cruse Bereavement Care's vision is that all bereaved people have somewhere to turn when someone dies. Our mission is to offer support, advice and information to children, young people and adults when someone dies, and to enhance society's care of bereaved people.

HealthtalkOnline - Family experiences of vegetative and minimally conscious states

Extensive information on the experience of having a relative in a vegetative or minimally conscious state. Includes a large number of interviews from family members to support information on critical care, longer term care, impact on family and friends, on-going decisions, death and dying and more.

British Institute for Brain Injured Children (BIBIC)

BIBIC is a national charity offering practical help to families caring for children with conditions such as autism, cerebral palsy, Down's syndrome, developmental delay, traumatic and acquired brain injury and specific learning difficulties such as attention deficits, hyperactivity disorder, dyslexia and dyspraxia.

Contact a Family

Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their health condition. We also enable parents to get in contact with other families, both on a local and national basis. Each year we reach at least 250,000 families

Counselling Directory

Depression Alliance

Depression Alliance is the leading national charity for people affected by depression. We provide a range of information and support services & work to reduce the stigma and isolation often associated by depression.

Learnet

A Resource for Teachers, Clinicians, Parents, and Students by the Brain Injury Association of New York State. Contains a range of tutorials covering different aspects of brain injury. Whilst the materials are aimed at students and young people, they are also applicable to adults.

ARCOS - the Association for Rehabilitation of Communication and Oral Skills

ARCOS is a national charity. We work with children and adults who have communication and eating (swallowing) difficulties, their families, carers and others involved. ARCOS provides information, advice, practical help, specialist therapy training and other services not readily available elsewhere.

Speakability

Advice line for people with dysphasia (loss of language following stroke or head injury), their families and professionals. Advice on accessing services, benefits, holidays, equipment and computer technology. Also gives advice on self-help groups and speech therapy.

Turn2Us

We are a charitable service which helps people access the money available to them - through welfare benefits, grants and other help. Our free, accessible website has been designed to help you find appropriate sources of financial support, quickly and easily, based on your particular needs and circumstances.

Headway Ireland

International Brain Injury Association

The International Brain Injury Association (IBIA) is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury.

Legal

APIL (Association of Personal Injury Lawyers)

APIL (the Association of Personal Injury Lawyers) is an independent, not for profit organisation providing accreditation to lawyers specialising in the area of personal injury law. Website includes a directory of accredited solicitors.

Association of Independent Visitors (UK)

A nationwide group of current and ex Court of Protection Visitors who formed an alliance to work with private clients and their families, solicitors, Deputies and Attorneys in upholding and safeguarding best interests.

Criminal Injuries Compensation Authority (CICA)

The Criminal Injuries Compensation Authority administers the criminal injuries compensation scheme throughout England, Scotland and Wales. We pay compensation to people who have been the victim of a violent crime.

Office of the Public Guardian (Scotland)

The Office of the Public Guardian has a general function to supervise those individuals who have been appointed to manage the financial or property affairs of an adult who lacks the capacity to do so for themselves. The office is based in Falkirk and covers the whole of Scotland

British Society of Rehabilitation Medicine (BSRM)

The Society encourages doctors in all clinical specialties to be involved in education and research into the management of disability. Membership of the BSRM is open to all registered medical practitioners interested and concerned with its objectives.

Chartered Society of Physiotherapy

The Chartered Society of Physiotherapy is the professional, educational and trade union body for the country's 45,000 chartered physiotherapists, physiotherapy students and assistants. It aims to support its members and help them to provide the highest standards of patient care

College of Occupational Therapists

Occupational therapists (OTs) can help people of all ages when physical and mental illness, disability, long-term condition, or the effects of ageing prevent them from doing the activities they need or want to do. Get more information and find occupational therapy services.

Disabled Living Foundation (DLF)

DLF are the leading source of information on disability equipment. They aim to give advice and information on any aspect of disability presenting problems through providing an information service and answering queries by telephone and letter. Maintain a large equipment display area, which may be visited by appointment.

Royal College of Speech and Language Therapists

Speech and language therapy provides treatment, support and care for children and adults who have difficulties with communication, or with eating, drinking and swallowing. Get more information and find speech and language therapy service.

Other useful organisations

AbilityNet

Did you know that there are 11 million disabled people in the UK, at least 4 million of whom have never been online? AbilityNet is the only charity in the UK that works with people with all disabilities and of all ages, helping them to use computers and the internet to improve their lives at home, at work and in education.

Consumer Affairs

Our mission is to empower consumers through education in the areas of credit, loans, insurance, debt and personal finance. Whether you are looking to take out a mortgage or you are considering a payday loan, we promise to provide the thorough and up-to-date information you need to make the best choice for you and your family

Equality and Human Rights Commission

The Equality and Human Rights Commission champions equality and human rights for all, working to eliminate discrimination, reduce inequality, protect human rights and to build good relations, ensuring that everyone has a fair chance to participate in society.

Money Advice Service

The Money Advice Service is a free and impartial advice service set up by the government. The information and advice they provide is sourced from experts and has the sole purpose of providing the UK public with helpful and actionable advice.

Headway - the brain injury association is registered with the Charity Commission for England and Wales (Charity no. 1025852) and the Office of the Scottish Regulator (Charity no. SC 039992). Headway is a company limited by guarantee, registered in England no. 2346893.