Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper1.
A feasibility “study” of the CHD registry was executed and the CHAANZ Consortium was established to work toward the planning of a Regional Congenital Heart Disease Registry for Australia and New Zealand covering the spectrum of life for those with Congenital heart disease.
A call for a lifetime regional registry was published in Heart Lung and Circulation in August 20162.

The Seven key objectives for the ANZ CHD registry identified are:

1. Patient Benefit – This is the key objective, focusing on the understanding of:

a)Early outcomes

b)Transition

c)Late outcomes

d)Access to follow-up

2.Benchmarking and quality

3.Service planning

4.Natural and unnatural history

5.Clinical research

6.Transition to follow-up

7.Australia and New Zealand Reputation

The projects currently being conducted by CHAANZ include:

Phase 1 - Epidemiology of congenital heart disease in Australia and New Zealand