I just heard about a new lupus study being conducted, and I thought I'd share. It's targeted toward lupus nephritis, or kidney involvement and inflammation due to lupus. The study is testing the effec...
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http://ehealthforum.com/blogs/despitelupus/new-lupus-study-for-lupus-nephritis-think-your-lupus-kidneys-would-be-interested-b49819.html
http://ehealthforum.com/blogs/despitelupus/new-lupus-study-for-lupus-nephritis-think-your-lupus-kidneys-would-be-interested-b49819.html
written by despitelupus

The Zoe Pillfold: slim, stylish, and discreet. Perfect for a night out, or a weekend away. Traveling with my pills to the LFA's Advocacy Awards Dinner never felt so swanky. My current anemic stat...
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http://ehealthforum.com/blogs/despitelupus/traveling-in-style-taking-my-lupus-medication-on-the-go-b49478.html
http://ehealthforum.com/blogs/despitelupus/traveling-in-style-taking-my-lupus-medication-on-the-go-b49478.html
written by despitelupus

I had the honor of accompanying my friend to the LFA's National Advocacy Awards Dinner last week. We had a wonderful time! It was a great night for lupus advocacy, and the event featured a refreshing ...
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http://ehealthforum.com/blogs/despitelupus/lfa-s-capitol-conversation-st-century-cures-act-dinner-drinks-and-decisions-to-cure-lupus-b49463.html
http://ehealthforum.com/blogs/despitelupus/lfa-s-capitol-conversation-st-century-cures-act-dinner-drinks-and-decisions-to-cure-lupus-b49463.html
written by despitelupus

Thanks to all of you who have written in or commented about the rising cost of our beloved plaquenil. It's so helpful to compare experiences, and to read about the real costs incurred by real patients...
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http://ehealthforum.com/blogs/despitelupus/plaquenil-shortage-and-price-hike-the-saga-hits-home-for-despite-lupus-b49182.html
http://ehealthforum.com/blogs/despitelupus/plaquenil-shortage-and-price-hike-the-saga-hits-home-for-despite-lupus-b49182.html
written by despitelupus

A few months ago, I posted about the scarcity of Plaquenil, causing a price hike in our beloved lupus staple drug. I've had great feedback from many of you sharing your experiences - know that we are ...
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http://ehealthforum.com/blogs/despitelupus/prescription-drug-savings-check-out-these-websites-b48900.html
http://ehealthforum.com/blogs/despitelupus/prescription-drug-savings-check-out-these-websites-b48900.html
written by despitelupus

I recently heard about a possible Hydroxychloroquine (Plaquenil) drug shortage, and thought I'd post.First and foremost, please don't panic. I know that Hydroxycholoroquine is typically a lupus staple...
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http://ehealthforum.com/blogs/despitelupus/shortage-of-my-favorite-hydroxychloroquine-brand-name-of-plaquenil-b47564.html
http://ehealthforum.com/blogs/despitelupus/shortage-of-my-favorite-hydroxychloroquine-brand-name-of-plaquenil-b47564.html
written by despitelupus

I came across this article about a possible new drug to treat lupus. Looks and sounds pretty promising. Read the full article here, and read an excerpt below:***Diabetes drug shows promise treati...
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http://ehealthforum.com/blogs/despitelupus/diabetes-drug-metformin-shows-promise-as-treatment-for-lupus-could-it-be-b47488.html
http://ehealthforum.com/blogs/despitelupus/diabetes-drug-metformin-shows-promise-as-treatment-for-lupus-could-it-be-b47488.html
written by despitelupus

Can you hear that? It's the sound of the Gorman household breathing a big sigh of relief. As of Feb 1st, three out of the four us had their health insurance restored. Thank goodness! (Johnny and the g...
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http://ehealthforum.com/blogs/despitelupus/whiling-away-the-hours-of-the-lupus-waiting-game-b47317.html
http://ehealthforum.com/blogs/despitelupus/whiling-away-the-hours-of-the-lupus-waiting-game-b47317.html
written by despitelupus

This past Saturday morning was supposed to look like this:Johnny stayed home with the girls.I went to Starbucks to blog.But I made a fatal mistake on the way to Starbucks. I made a stop.Trying to be e...
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http://ehealthforum.com/blogs/despitelupus/tackling-the-insurance-company-one-lupus-issue-at-a-time-b47149.html
http://ehealthforum.com/blogs/despitelupus/tackling-the-insurance-company-one-lupus-issue-at-a-time-b47149.html
written by despitelupus

This is a question I hear quite often when it comes to selling Pillbags. Customers want to know exactly how big the zippered pouches of the Pillfold are, and I understand. If your pills don't fit...
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http://ehealthforum.com/blogs/despitelupus/how-many-pills-can-a-pillfold-hold-asked-the-customer-to-the-pillbag-lady-b46680.html
http://ehealthforum.com/blogs/despitelupus/how-many-pills-can-a-pillfold-hold-asked-the-customer-to-the-pillbag-lady-b46680.html
written by despitelupus

My daughter Deirdre is five going on 15. She is a precocious little lady - and makes me earn my parenting badge on a weekly basis.Of course, I love her dearly, and appreciate the challenge of staying ...
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http://ehealthforum.com/blogs/despitelupus/lupus-treatment-being-open-to-change-b45014.html
http://ehealthforum.com/blogs/despitelupus/lupus-treatment-being-open-to-change-b45014.html
written by despitelupus

Mention the phrase "taper off prednsione", and my body instantly tenses up. I know I've written about my attempts (some failed, some successful) to taper off steroids in the past, but I thought I'd te...
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http://ehealthforum.com/blogs/despitelupus/the-way-a-prednisone-taper-is-supposed-to-work-b44990.html
http://ehealthforum.com/blogs/despitelupus/the-way-a-prednisone-taper-is-supposed-to-work-b44990.html
written by despitelupus

A few weeks ago, I blogged about the incredible savings I was going to see by ordering my Cellcept prescription in a 3-month supply. The numbers were astounding to me - $400/month if I filled it ...
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http://ehealthforum.com/blogs/despitelupus/mail-order-prescriptions-update-on-cellcept-b44198.html
http://ehealthforum.com/blogs/despitelupus/mail-order-prescriptions-update-on-cellcept-b44198.html
written by 76Trombones

GIFTS, GRADES, GROWTH MINDSET. A teacher blogs about a "brilliant thinker" in her class, a young man who often suffers meltdowns because of the gap between a "growth mindset" and a grade, a "number th...
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http://ehealthforum.com/blogs/76trombones/from-the-publishers-of-e-newsletter-b43619.html
http://ehealthforum.com/blogs/76trombones/from-the-publishers-of-e-newsletter-b43619.html
written by despitelupus

Are you ready to hear some astounding prescription drug figures? I recently started CellCept again, after an almost seven-year hiatus. (After several years of plaquenil, prednisone, and a couple ...
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http://ehealthforum.com/blogs/despitelupus/a-pitch-for-month-supply-medications-the-numbers-don-t-lie-b43549.html
http://ehealthforum.com/blogs/despitelupus/a-pitch-for-month-supply-medications-the-numbers-don-t-lie-b43549.html
written by Fiddy

34 year-old Ivan Lopez has been named as the gunman who shot and killed 3 people whilst injuring 16before turning the pistol on himself at an army base in Fort Hood, TX.Pro and anti gun lobbyists are ...
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http://ehealthforum.com/blogs/fiddy/fort-hood-shooter-the-mental-illness-excuse-b43511.html
http://ehealthforum.com/blogs/fiddy/fort-hood-shooter-the-mental-illness-excuse-b43511.html
written by despitelupus

Here's my second Pillbag how-to video - explaining how a Pillpouch works and why I needed a better solution for organizing my pill bottles. I bet that clear plastic bag looks familiar to a few of you ...
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http://ehealthforum.com/blogs/despitelupus/what-s-a-pillpouch-and-how-does-it-work-pillpouch-how-to-video-to-the-rescue-b43421.html
http://ehealthforum.com/blogs/despitelupus/what-s-a-pillpouch-and-how-does-it-work-pillpouch-how-to-video-to-the-rescue-b43421.html
written by despitelupus

As many of you know, I am no stranger to lupus hair loss. I've actually lost my hair multiple times due to my illness. Some bouts I would categorize as drastic hair loss, others I would put in the sig...
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http://ehealthforum.com/blogs/despitelupus/lupus-hair-loss-playing-it-safe-or-living-in-fear-b43402.html
http://ehealthforum.com/blogs/despitelupus/lupus-hair-loss-playing-it-safe-or-living-in-fear-b43402.html
written by despitelupus

I love the findings in this latest investigation into lupus! It's so refreshing to see the issues that are oh-so-present in my daily life with lupus grouped and identified accurately, and then spelled...
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http://ehealthforum.com/blogs/despitelupus/the-themes-of-systemic-lupus-i-think-they-re-spot-on-b43248.html
http://ehealthforum.com/blogs/despitelupus/the-themes-of-systemic-lupus-i-think-they-re-spot-on-b43248.html
written by despitelupus

A little over a week ago, I recounted the details of my most recent doctor's appointment. To my relief, he put me on CellCept, changed up my prednisone, and altered my plaquenil. It was a busy appoint...
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http://ehealthforum.com/blogs/despitelupus/lupus-lymph-node-a-biopsy-fire-drill-b43211.html
http://ehealthforum.com/blogs/despitelupus/lupus-lymph-node-a-biopsy-fire-drill-b43211.html
written by despitelupus

In Wednesday's post, I told you how emotionally prepared I was to accept my doctor's recommendation to start Methotrexate. I was ready and willing to go big-gun when I arrived for my appointment....
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http://ehealthforum.com/blogs/despitelupus/back-on-cellcept-hooray-b42969.html
http://ehealthforum.com/blogs/despitelupus/back-on-cellcept-hooray-b42969.html
written by despitelupus

When I'm faced with a big decision regarding my health, as I feel I am now re: the choice of starting a big gun medicine like Methotrexate, I tend to follow a pattern. In fact, my modus operendi looks...
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http://ehealthforum.com/blogs/despitelupus/my-lupus-decision-making-process-better-known-as-r-e-l-d-b42930.html
http://ehealthforum.com/blogs/despitelupus/my-lupus-decision-making-process-better-known-as-r-e-l-d-b42930.html
written by despitelupus

GETTING THE MOST OUT OF YOUR DOCTORS APPOINTMENT - Guest Post by Donald E. Thomas, Jr., M.D., FACP, FACR, RhMSUS, CCD. A few years ago, I ran across a very interesting book called, Say The M...
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http://ehealthforum.com/blogs/despitelupus/guest-post-dr-donald-thomas-author-of-the-lupus-encyclopedia-due-out-this-year-b42839.html
http://ehealthforum.com/blogs/despitelupus/guest-post-dr-donald-thomas-author-of-the-lupus-encyclopedia-due-out-this-year-b42839.html
written by despitelupus

Continuing from Wednesday's post, question number three still lingers in my current medication debate. I find that as a patient, it helps to do some personal inventory outside of my appointments with ...
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http://ehealthforum.com/blogs/despitelupus/when-to-cry-uncle-determining-how-much-is-too-much-lupus-activity-b42736.html
http://ehealthforum.com/blogs/despitelupus/when-to-cry-uncle-determining-how-much-is-too-much-lupus-activity-b42736.html
written by despitelupus

Per last week's post, you know I had some homework to do. At my last appointment, my doctor suggested that I try methotrexate, a drug that, up until now, I've never had to consider. Over the past seve...
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http://ehealthforum.com/blogs/despitelupus/psyching-myself-up-for-methotrexate-while-plotting-away-at-my-line-graph-b42677.html
http://ehealthforum.com/blogs/despitelupus/psyching-myself-up-for-methotrexate-while-plotting-away-at-my-line-graph-b42677.html
written by despitelupus

Its time for another installment of My Fall Lupus Flare, which has unfortunately morphed into My Winter Lupus Flare. But thats okay. Thats why I have this blogand all of your wonderful comments,...
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http://ehealthforum.com/blogs/despitelupus/continuing-to-taper-while-staying-strong-at-the-doctor-s-office-b42537.html
http://ehealthforum.com/blogs/despitelupus/continuing-to-taper-while-staying-strong-at-the-doctor-s-office-b42537.html
written by despitelupus

Wow. 2014. We made it!The start of a new year is always a good time to reflect on the previous year's happenings - big, little, and in between. 2014 was a good year for me, my family, my house (!), an...
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http://ehealthforum.com/blogs/despitelupus/ushering-in-the-new-year-armed-with-lupus-knowledge-b41934.html
http://ehealthforum.com/blogs/despitelupus/ushering-in-the-new-year-armed-with-lupus-knowledge-b41934.html
written by despitelupus

A few months back, my girlfriend went into a doctor's appointment. The doctor asked her how things were going, she said not so well, and the doctor asked what had been happening. My girlfrie...
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http://ehealthforum.com/blogs/despitelupus/informed-but-filtered-using-the-internet-to-help-your-lupus-not-hurt-it-b41791.html
http://ehealthforum.com/blogs/despitelupus/informed-but-filtered-using-the-internet-to-help-your-lupus-not-hurt-it-b41791.html
written by eHealthGuide

Grief and depression are similar but different human reactions to loss of a loved one. The response to bereavement starts with grief and sometimes progresses to depression.
Grief and the Griev...
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http://ehealthforum.com/blogs/ehealthguide/is-it-grief-or-depression-b41691.html
http://ehealthforum.com/blogs/ehealthguide/is-it-grief-or-depression-b41691.html
written by eHealthGuide

Attention deficit hyperactivity disorder (ADHD) is a neurobiological disorder that is typically diagnosed before a child reaches the age of seven. Signs of the condition are displayed through de...
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http://ehealthforum.com/blogs/ehealthguide/understanding-adhd-b41308.html
http://ehealthforum.com/blogs/ehealthguide/understanding-adhd-b41308.html
written by despitelupus

Exciting news in the world of lupus research! Looks like researchers at Northwestern University have made great strides in designing a new non-toxic therapy that suppresses lupus in blood samples.&nbs...
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http://ehealthforum.com/blogs/despitelupus/non-toxic-therapy-for-lupus-successfully-tested-on-patients-onward-and-upward-b41100.html
http://ehealthforum.com/blogs/despitelupus/non-toxic-therapy-for-lupus-successfully-tested-on-patients-onward-and-upward-b41100.html
written by despitelupus

Tapering off prednisone does not come easily to me. My body never seems to remember how to do it, no matter how many times I've been through it!Of course, the higher the dose and the longer I've been ...
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http://ehealthforum.com/blogs/despitelupus/tapering-off-prednisone-learning-to-be-brave-b40982.html
http://ehealthforum.com/blogs/despitelupus/tapering-off-prednisone-learning-to-be-brave-b40982.html
written by despitelupus

Since the moment I sewed my first Pillfold prototype, I've used some version of the bag to hold my daily medication. I've tried out all of the fabrics to make sure they wear well and look go...
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http://ehealthforum.com/blogs/despitelupus/double-trouble-my-new-pillfold-strategy-b40171.html
http://ehealthforum.com/blogs/despitelupus/double-trouble-my-new-pillfold-strategy-b40171.html
written by despitelupus

The Pink Ladies (the Pillfold Colina, Amelia, Winchester, seen below, and the Pillpouch Peabody, at the left) now have their own listings on Amazon. They've hit the big time, and they're feeling prett...
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http://ehealthforum.com/blogs/despitelupus/the-pink-ladies-are-on-amazon-b39919.html
http://ehealthforum.com/blogs/despitelupus/the-pink-ladies-are-on-amazon-b39919.html
written by despitelupus

We conducted a mini-photo shoot this week, and the Pillfold Winchester updated her look! Here's a shot of the new product shots - lots of pink in this shipment of the Winchester. It looks so good on m...
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http://ehealthforum.com/blogs/despitelupus/the-pillfold-winchester-gets-a-new-glamour-shot-b39188.html
http://ehealthforum.com/blogs/despitelupus/the-pillfold-winchester-gets-a-new-glamour-shot-b39188.html
written by despitelupus

Decisions. I counted 27 of them in the master bathroom the other day. Twenty-seven decisions in that little space that we made in order for the room to turn out the way it did. Everything from choosin...
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http://ehealthforum.com/blogs/despitelupus/lupus-decisions-good-tips-continued-b39046.html
http://ehealthforum.com/blogs/despitelupus/lupus-decisions-good-tips-continued-b39046.html
written by despitelupus

I feel like Johnny and I have been in a permanent state of decision-making for the past two years. Thats about the time we started the process of renovating our house. I thought working with our archi...
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http://ehealthforum.com/blogs/despitelupus/the-decision-making-process-a-few-helpful-hints-b39011.html
http://ehealthforum.com/blogs/despitelupus/the-decision-making-process-a-few-helpful-hints-b39011.html
written by despitelupus

GlaxoSmithKline (the guys who brought us Benlysta) just launched a new campaign to assist lupus patients prepare for and communicate during their doctors' appointments. They offer cheat sheets to trac...
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http://ehealthforum.com/blogs/despitelupus/brave-new-face-a-new-resource-for-lupus-patients-b38571.html
http://ehealthforum.com/blogs/despitelupus/brave-new-face-a-new-resource-for-lupus-patients-b38571.html
written by despitelupus

In the beginning, there was a Pillbox. A small, dainty, Parisian-inspired metal pillbox, just big enough for my mid-day doses of medication. One of my best friends from college sent it to me upon hear...
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http://ehealthforum.com/blogs/despitelupus/the-origin-of-the-pillbags-b37978.html
http://ehealthforum.com/blogs/despitelupus/the-origin-of-the-pillbags-b37978.html
written by despitelupus

After working together for almost two years, my architect thinks he deserves his own label on my blog. Granted, we love our architect, we don't make a move without his approval, and hiring h...
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http://ehealthforum.com/blogs/despitelupus/architect-knows-best-b37701.html
http://ehealthforum.com/blogs/despitelupus/architect-knows-best-b37701.html
written by despitelupus

What was I thinking?Thats what I keep asking myself as I reflect upon the happenings of the last three months. February, March and April marked an interesting time at Sara G. Enterprises. I was busy, ...
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http://ehealthforum.com/blogs/despitelupus/lupus-rule-of-thumb-take-time-to-get-time-b37427.html
http://ehealthforum.com/blogs/despitelupus/lupus-rule-of-thumb-take-time-to-get-time-b37427.html
written by despitelupus

I'm pleased to be able to share the following videos with you - the first is an endorsement from a doctor in Tennessee who's adopted the Sara Gorman's Pillbag method for organizing his ...
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http://ehealthforum.com/blogs/despitelupus/the-pillbags-on-you-tube-b36469.html
http://ehealthforum.com/blogs/despitelupus/the-pillbags-on-you-tube-b36469.html
written by despitelupus

It's time to unveil my new spring line of Pillbags. Hooray! Pillpouch Peabody A larger shot of the Peabody fabric. Fun, huh? Although I won't be introducing the new Pillfolds in th...
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http://ehealthforum.com/blogs/despitelupus/the-new-spring-line-of-pillbags-introducing-the-pillpouch-peabody-b36444.html
http://ehealthforum.com/blogs/despitelupus/the-new-spring-line-of-pillbags-introducing-the-pillpouch-peabody-b36444.html
written by despitelupus

While I was in Memphis shooting the lupus video I blogged about a few weeks ago (video to be unveiled soon - I can't wait!), the young lady spearheading the video project asked me a question...
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http://ehealthforum.com/blogs/despitelupus/a-cure-for-lupus-what-if-b35913.html
http://ehealthforum.com/blogs/despitelupus/a-cure-for-lupus-what-if-b35913.html
written by despitelupus

So much excitement this week at Pillbag headquarters. We filed our final response to the Patent and Trademark Office earlier this week, so the fate of my utility patent is now in the hands of the exam...
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http://ehealthforum.com/blogs/despitelupus/en-vogue-medical-supply-bags-of-the-world-unite-b35663.html
http://ehealthforum.com/blogs/despitelupus/en-vogue-medical-supply-bags-of-the-world-unite-b35663.html
written by Dr. Linda Burke-Galloway

Timing is everything, especially when it involves a pregnant woman taking medication. The article in the New York Times by Jane Brody reminded me of the countless discussions Ive had with pregnant wom...
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http://ehealthforum.com/blogs/dr-linda-burke-galloway/pregnant-moms-think-before-you-take-that-pill-during-the-first-trimester-b35614.html
http://ehealthforum.com/blogs/dr-linda-burke-galloway/pregnant-moms-think-before-you-take-that-pill-during-the-first-trimester-b35614.html
written by despitelupus

A few days ago, I took the perfect afternoon nap. I fell asleep the moment my head hit the pillow, I woke up on my own, I wasn't too hot or too cold, and I woke up completely rested. Ah...perfection.I...
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http://ehealthforum.com/blogs/despitelupus/perfecting-the-lupus-nap-b35611.html
http://ehealthforum.com/blogs/despitelupus/perfecting-the-lupus-nap-b35611.html
written by despitelupus

Good news on the lupus front: a recent study found no clear indication that the occurrence of lymphoma is mostly driven by drug treatments for lupus. Also no clear association was observed betwee...
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http://ehealthforum.com/blogs/despitelupus/lupus-and-lymphoma-no-clear-link-b35416.html
http://ehealthforum.com/blogs/despitelupus/lupus-and-lymphoma-no-clear-link-b35416.html
written by despitelupus

Doh! The Pillbag Lady forgot her pills! On a recent trip to Indiana in January, I left home without my medication. The girls and I were flying home to visit my parents, and just as I was packing up al...
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http://ehealthforum.com/blogs/despitelupus/a-mad-dash-for-a-pillpouch-b35374.html
http://ehealthforum.com/blogs/despitelupus/a-mad-dash-for-a-pillpouch-b35374.html