'Saving Henry': Remembering Henry Strongin Goldberg

Saving Henry

When Henry Strongin Goldberg was born in 1995, doctors told his parents Laurie Strongin and Allen Goldberg that he might never reach kindergarten. Henry suffered from Fanconi Anemia, a rare genetic disease with no cure.

Courtesy Allen Goldberg

Saving Henry

When Henry Strongin Goldberg was born in 1995, doctors told his parents Laurie Strongin and Allen Goldberg that he might never reach kindergarten. Henry suffered from Fanconi Anemia, a rare genetic disease with no cure.

Courtesy Allen Goldberg

Saving Henry

After Henry died at age 7, his parents started a foundation in his honor called Hope for Henry to help children suffering from serious illnesses.

Courtesy Allen Goldberg

Saving Henry

Henry with his father, Allen Goldberg.
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"You cannot be sad around him," Goldberg told ABC News in an interview for "Nightline" that aired in 2002. "You cannot be angry about the hand we've been dealt when you're around him because he has that sunny disposition all the time."

Courtesy Allen Goldberg

Saving Henry

Henry's life was spent in and out of hospitals, but his parents say his positive attitude was unwavering.

Courtesy Allen Goldberg

Saving Henry

In her eulogy for Henry, Laurie Strongin spoke of all that she'd learned from her son.
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"Henry taught me what was important and what just didn't matter at all," she said, "And he taught me to savor each moment; to love; to laugh and to dwell in possibility."

Courtesy Allen Goldberg

Henry's Hope Inspires Family's Journey

Despite his illness, Henry was able to participate in sports such as soccer and karate. In many ways he was a normal, happy child.

Courtesy Allen Goldberg

Saving Henry

Henry's mother, Laurie Strongin, has written a new book about Henry and their experience, called <a href="http://abcnews.go.com/GMA/Books/laurie-strongins-saving-henry/story?id=10022096" target="external">"Saving Henry: A Mother's Journey." </a>

Courtesy Allen Goldberg

Saving Henry

Henry is seen here in the hospital with his mother.

Courtesy Allen Goldberg

Saving Henry

Henry's best hope for survival was a bone marrow transplant from a close genetic match. His parents put their hope in a process called pre-implantation genetic diagnosis, which would allow them to choose and implant embryos without Fanconi anemia that would be a match for Henry. Laurie Strongin underwent in-vitro fertilization nine times without success.

Courtesy Allen Goldberg

Saving Henry

Saving Henry

Henry, seen here with his mom in a Batman costume, always loved superheroes. For those who knew him and the lives he has touched since his death, Henry is the true superheroe.