Categories

Archived News...

Caroline’s Story

I’m Caroline and would like to fill you in on my history. I’m 59, married, with 2 sons in their 20’s. I was diagnosed with Masto/Urticaria Pigmentosa 17 years ago and by the first consultant. I continued to see him for many years but government cutbacks meant he wasn’t allowed to see dependants any more so I was transferred to the NHS. I feel quite lucky that the dermatologist that I saw until last year (when she changed hospitals) was very good in as much as if I suggested something I had read about she would give it a try. I now see a dermatologist and a Professor of Haematology once a year plus a consultant for my “bones” at least twice a year. (All of them I can see on a SOS basis at any time).

I now have SM [systemic mastocytosis] which has given me asthma; I also have osteoporosis, a slightly enlarged spleen and tenderness around the liver also chronic neutropenia and a raised tryptase of over 200. Medications are Fosamax [alendronic acid] 70mg weekly, Pulmicort [budesonide] and Ventolin [salbutamol], Zoton [lansoprazole] 15mg daily, ketotifen 1mg twice daily, amitriptyline 10mg 3 daily, Calcichew D3 two per day. All of which are generally keeping me under control.

LET’S BE SOCIAL

SEND US A MESSAGE

Cookies on the UK Masto website. The UK Masto website uses cookies to help enhance your experience and improve functionality on our website. By continuing to use our website you are agreeing to the use of these cookies. For more information please see our Privacy Policy Page. Find out more.