My name is Brooklyn. I am six years old and I have Rett Syndrome. My mommy works with a wonderful Rett Syndrome organization called Girl Power 2 Cure. Be sure to check it out www.girlpower2cure.org
I hope you enjoy this blog...it is filled with stories and pictures of our family's life with Rett Syndrome.

Wednesday, May 20, 2009

As a special needs mom I know first hand how expensive all of the adaptive equipment is! Of course, this comes at a time when insurance companies do not want to cover any "extras" If you call items our kiddos need to live fulfilling lives "extras!" It is all so frustrating! AdaptiveMall is trying to help us out!

We have gotten quite a few items we needed from AdaptiveMall and have been very happy with them. I received an interesting email from them today. They have launched their "kiddie pool" program which is a way that your friends and family can help you fund that special piece of equipment you have had your eye on! Just click on the logo to read more. I hope this can help some families out!

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Rett Syndrome Family Map-Get in contact with other Rett families near you or around the world!

Click on "view larger map" below. Once the map expands click "edit" you will then see the blue marker at the top of the map. Click on it and drag it to your home town! You can then right click & add contact information and details about your angel!
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