Jo Russell knows what it's like to be faced with little money and long waiting lists when trying to access care for her children.

The situation is much worse for people with severe physical disabilities, she said.

"For people who have a severe and profound disability I can only imagine, and I know, that trying to access what you need is the stuff of nightmares.

"You have to take your place, in a line, to be allocated your ration of a system that is currently underfunded, terribly fragmented and very disorganised," she said.

The NDIS has been back in the headlines this week as the federal government proposed an increase to the Medicare levy to fund the scheme.

The increase would amount to about $1 per day for a person on an average wage.

Jo fears that "bickering" amongst states and politicians about funding for the NDIS will see a decline in its popularity.

"It has made me so cross that it has happened this way, initially the Productivity Commission recommended that the NDIS be funded out of consolidated revenue, then there was the suggestion that it should come out via a levy or another tax.

"At the moment because people are disillusioned with government, they are disillusioned about the implementation of yet another levy or what is seen as yet another tax, but the principal behind this levy is the people it will support.

"It's like the concept of the NDIS has been tarnished by bickering, there is no room for bickering."

Jo said WA needs to get fully on board with the NDIS and that she wants to see a levy fund the system.

She said the roll out of the NDIS will mean people with disabilities will get the assistance they need to start better contributing to the community and economy.

To listen to Lorraine Horsley's interview with Jo Russell click play on the audio player above.