I'm going to lose my baby! :'(

I'm 13 weeks and I have one twin with anencephaly and one without. For those of you that don't know anencephaly is 100% fatal. My heart is broken. I don't know how I'm going to get through the next 6months knowing once I deliver my baby will die. :'(

I'm 13 weeks and I have one twin with anencephaly and one without. For those of you that don't know anencephaly is 100% fatal. My heart is broken. I don't know how I'm going to get through the next 6months knowing once I deliver my baby will die. :'(

I accidentally saw a picture of anacephaly babies and I cried for hours. I couldn't imagine having to go thru it. A friend I used to work with is going thru the same. She has to carry her all the way to term. It's sad. I'm so sorry dear.

I accidentally saw a picture of anacephaly babies and I cried for hours. I couldn't imagine having to go thru it. A friend I used to work with is going thru the same. She has to carry her all the way to term. It's sad. I'm so sorry dear.

I am extremely sorry for what you will have to go through. However, I found this web-site with all kinds of support groups and information that you might find useful. http://anencephaly.net/ You have my prayers.

I am extremely sorry for what you will have to go through. However, I found this web-site with all kinds of support groups and information that you might find useful. http://anencephaly.net/ You have my prayers.

So sorry to hear this. We recently lost our son to anencephaly at 21 weeks. It's very heartbreaking knowing there is nothing you can do to help your baby. I had never heard of it before and now it seems way too common! There is a private group on FB called anencephaly angels.

So sorry to hear this. We recently lost our son to anencephaly at 21 weeks. It's very heartbreaking knowing there is nothing you can do to help your baby. I had never heard of it before and now it seems way too common! There is a private group on FB called anencephaly angels.

I am so very sorry. You are faced with such a difficult time over the next few months. Strangers will ask when the babies are due or the genders not knowing how hrs those questions are to answer when you are faced with a fatal diagnosis for your child. My son had Trisomy 18 and it was so hard!! But, I will also say he is one of my greatest gifts! I wouldn't wish my experience on my worst enemy, but I would do it all over in a second! I would suggest talking to your doctor about a perinatal hospice program to see if there is one in your area. We got lots of support from ours and only found out after my son was born that we were the first ones to use the program. You can google perinatal hospice and also find resources. String of pearls is one remember reading. There is also a support group for anencephaly. I would also look into Now I Lay Me Down To Sleep. A friend used their services and has beautiful pictures of her son. My heart breaks for you! Know that lots of prayers are being said for you and your babies!

I am so very sorry. You are faced with such a difficult time over the next few months. Strangers will ask when the babies are due or the genders not knowing how hrs those questions are to answer when you are faced with a fatal diagnosis for your child. My son had Trisomy 18 and it was so hard!! But, I will also say he is one of my greatest gifts! I wouldn't wish my experience on my worst enemy, but I would do it all over in a second! I would suggest talking to your doctor about a perinatal hospice program to see if there is one in your area. We got lots of support from ours and only found out after my son was born that we were the first ones to use the program. You can google perinatal hospice and also find resources. String of pearls is one remember reading. There is also a support group for anencephaly. I would also look into Now I Lay Me Down To Sleep. A friend used their services and has beautiful pictures of her son. My heart breaks for you! Know that lots of prayers are being said for you and your babies!

I'm so sorry :( Just curious why they don't terminate the fetus that is abnormal? I was pregnant with Triplets and one was abnormal so we did a reduction because it was better overall for the pregnancy. Something to think about ya know.

I'm so sorry :( Just curious why they don't terminate the fetus that is abnormal? I was pregnant with Triplets and one was abnormal so we did a reduction because it was better overall for the pregnancy. Something to think about ya know.

I was wondering if you found out through an afp screening? I am about 19 weeks and had one done a couple weeks ago and my doc called to say my screening came back high? Now I have to go to a specialist because he said there could be spinal damage...or as I've read through research the same thing you are going through. I am really scared. I lost a baby in april, I am so sorry u are going through this... And having one healthy child does not replace another...no matter what the doctors say, have faith and keep hope, that's all I can do right now as well. I will pray for you and your family.

I was wondering if you found out through an afp screening? I am about 19 weeks and had one done a couple weeks ago and my doc called to say my screening came back high? Now I have to go to a specialist because he said there could be spinal damage...or as I've read through research the same thing you are going through. I am really scared. I lost a baby in april, I am so sorry u are going through this... And having one healthy child does not replace another...no matter what the doctors say, have faith and keep hope, that's all I can do right now as well. I will pray for you and your family.

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