I am 21 years old and a college student just trying to survive my everyday life with Chiari Malformation, Ehlers Danlos Syndrome, Intracranial Hypertension, Mast Cell Activation Disorder, POTS, Tethered Cord, Gastroparesis, and Interstitial Cystitis.

Tuesday, May 15, 2012

Quick Update

Not much to update on health wise. I'm feeling the same. I am continuously nauseous all day every day. And now my right arm is very weak and is hard to use.

This week is BuSy! I have prom, my sister Baylie`s Confirmation, and senior awards added with some small daily stuff. I'm hoping I can make it through all that. It does not seem like much for the average person, but believe me when I say it will wipe me out completely. Its hard to believe that there are only 17 days of high school left for me ever. Its very bittersweet, but I'm ready. It is a really good feeling to accomplish school with everything else I have dealt with.

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I am 19 years old and I have had 12 surgeries. I have Chiari Malformation, Ehlers Danlos Syndrome, Tethered Cord, Inter Cranial Hypertension, Mast cell Activation Disorder, Interstitial Cystitis, POTS, Chronic acute Mono and Cranial Vertebral Instability. I was granted a Make-A-Wish trip in December 2012. I have an amazing support system and the best docors around. Ask me any questions or give me any advice you may have.