I don't post here much and I don't know who else to vent to so I hope
you all don't mind. Please keep in mind, I am not looking for judgement
for the choices I am making right now. If you have such, please keep
them to yourself.
My diabetes (last a1c 9.9), neuropathy (lots of untreated pain),
gastroparesis (lots of untreated vomiting because I am limited to very
few foods
<http://www.emilysstomach.com/2013/01/gastroparesis-diet-from-mayo.html>
not to mention the food allergies I have), neurogenic bladder (peeing
myself all the time or cant pee at all) and my blood pressure etc are
all out of control. I have been to dr after dr trying to get help and as
one dr put it frankly, if I am not going to help myself (by losing
weight and getting my a1c down etc) there is nothing she can or will do
for me. This dr told me that she expects me to vigorously exercise for
the next 8 weeks until I see her again. I told her I need to take baby
steps and she huffed and said well when you are ready you just let me
know. I can't sit up without my blood pressure raising by 40-50 points
and it makes me woozy and so I have to stay in bed half the time. The
other half the time is because I am in so much pain, I am exhausted
because I sleep an hour or so at a time. I can't walk more than 30 yards
to take out my garbage without being out of breath and so exhausted when
I get back I fall asleep. My PCP called me into her office because she
has received similar letters from other dr's she has referred me to
lately. They have also boiled things down to my problems being
psychologically based.
I do have an adrenal tumor which is sporadically producing
norepinephrine and my aldosterone levels are either borderline high or
almost nill. My cortisol level likewise is not giving consistent numbers
and I am waiting for a 24 hour cortisol test to come back. This is part
of the reason I am seeing so many specialists. I am convinced my
diabetes is so out of control because of my adrenal gland or some other
hormone causing things to truly be out of my control. Back in Sept, I
was forced into a psychiatric ward under the threat of being petitioned
by the court because my diabetes is out of control and it must be my
fault. I was screamed at twice by the medical doctor there for stealing
food, hiding food you name it.
Several doctors suggested an insulin pump, however my insurance does not
cover one yet they cover the supplies. So I contacted the Charles Ray
III Association and they said they would sell me a refurbished one for
$1,360 cash. I am on disability and that is twice what I get a month,
and I don't qualify for a credit card. I have sold a lot of my things
trying to save for it but instead the money has gone to Glucerna. My
insurance won't pay for that either unless I have a feeding tube.
My blood sugar has bordered on 600 many times in the last few months and
my blood pressure spikes puts me at imminent risk of a heart attack or a
stroke.
I called my insurance about bariatric surgery and they said I don't
qualify because my BMI is slightly too low (34 and it has to be 35) and
because they require that I prove for 6 months that I exercise and I eat
fruits and veggies.
I don't know what else to do except starve myself. In the last 10 days I
have eaten either nothing at all, including juice or glucerna or when I
have had a single Glucerna, I stop losing weight. I have lost some
weight but I am stuck and I have gained 2 lbs back from drinking 1
Glucerna a day the last 2 days. Honestly, I am contemplating taking meth
to lose weight, and I abhor drugs.
On top of it all, I am quickly losing my vision. I can't even read a
book. My CDE gave me two paperbacks and I told her I couldn't read them
and she insisted that my vision will fluctuate and I will be able to
read them. I was so upset tonight I tore up one of those books. I would
have never done that ever before. I value books.
I know this sounds drastic but I am going to die if I don't do something
and dr's wont help me. I have switched drs many times and I get this
same attitude from all of them. Either doctors are too ignorant and/or
lazy to see if something is wrong with me that is out of my control, or
something is essentially wrong with me and I don't deserve to be treated
and to live.
I am just stuck between a rock and a hard place and I need help and no
one will help me. I really don't want to die.
Again, not looking for judgement. Reasonable advice will be considered
but please keep in mind I have multiple extremely complicated things
going on.
Louree
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