This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.

Sunday, April 23, 2006

Awake Time on Sunday

We are hitting Ellie's awake time more and more these days and it is great to see her up and at em and exploring with her eyes (as much as 14 day old babies can, anyway).

She is happy and is enjoying songs and poems from Shel Silverstein, which surprisingly wake her up and make her look around.

A little it of barf this AM but the surgeons weren't concerned by it. Babies barf, I guess.

Getting better at diaper time but still miss every now and then as Ellie pees all over everything. Ah, babies....

1 comment:

The thing to remember is that a diaper is not an event, it is an ongoing process. The goal is to find the perfect time to move in for the change. Too early and you get to clean the table, too late and you're changing outfits. In this case it sounds like a good problem to have.