Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder and is worldwide! There are many genetic and symptomatic variations of EB, but all share the prominent symptom of EXTREMELY fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is ALWAYS painful, is often pervasive and debilitating, and is in some cases lethal before the age of 30. EB affects 1 out of every 20,000 live births in the USA and those born with it are often called ‘Butterfly Children’ because as the analogy goes, their skin is as fragile as the wings of a butterfly. THERE IS NO TREATMENT OR CURE. Daily wound care, pain management and protective bandaging are the only options available.