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Author
Topic: Do any of you know how many meds you've taken thur the yrs. (Read 29315 times)

OK I know this has been done before, but I was way too lazy to look up whatever thread is was on so here's my updated list of Meds, how do yours stack up, I thought this was more appropriate for the LTS forums?

Seroconverted: Early 80sTested & confirmed what I already knew: early 90s

Current regimen: Atripla. Last regimen: Epzicom, Sustiva (since its inception with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky )Past regimensFun stuff (in the past): HAV/HBV, crypto, shingles, AIDS, PCP

I have often thought of trying to make a list of all the medical problems I have had (with HIV) but I could not do it without dr's charts to go by, because I (stupidly) did not keep a journal, was too sick to keep one a lot of the time anyway, and I have only sketchy memories to go by.

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"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

I have often thought of trying to make a list of all the medical problems I have had (with HIV) but I could not do it without dr's charts to go by, because I (stupidly) did not keep a journal, was too sick to keep one a lot of the time anyway, and I have only sketchy memories to go by.[/quote]

I understand, the sketchy memories play havoc ,for me, with having a clear idea off time lines, some years are represented by one or two hyper clear memories and that's it. Off course I was a great believer in herbal pain control,all most evangelicallove mhtv

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"If we can find the money to kill people, we can find the money to help people ." Tony Benn

I also had to use the drugs section on here to help jog my memory because my memory was never very good to begin with and also because I actually tried to forget a lot of these drugs. Heres the list as best as I can recall.

I cant begin to remember them all but I will name a few ... and they are not in the right order .

And now back to Atripla .

You did just fine jg, just fine, thanks for your im-put, this really gives some info, on what we've taken thur the yrs. and maybe some Doctor will come in here and see this, and tell us why were all so fucked up with are health and bodies, you just never know, I hope to find this info out anyway I can, I hope

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"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Infected for (at most) 23 years (at least) 21 years, 18 years of treatment, 18 different medications

We are some old mo fo's I gave my list to my ID-Doctor, and she ask me if she could use my list for training purposes @ the school of HIV/AIDS Medicine @ University of New Mexico, I was quite flattered

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"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Are you talking just about HIV meds? Or meds in general? Strangely enough, I cannot remember all the names of the meds. Like Alan, I never kept a journal, doctor's notes, labs etc. I know I took all the early ones-AZT, ddC, ddI, 3tc, Crixivan, liquid something (could it have been Kaletra, or maybe Norvir), Viramune, Zerit, Sustiva, Lexiva, Truvada, Abacavir (isn't this the one you have to carry a warning card with you), now on Truvada and Isentress (easiest combo I've been on).

I'm sure that's probably not a complete list. I was diagnosed 21 years ago, most likely been infected for 23 or 24, diagnosed with AIDS 16 years ago.

« Last Edit: March 28, 2011, 04:50:38 AM by BT65 »

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I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Dear David, I take note, and will only post back here when I'm a LTS too, into 15 years or so, I promise! but I hope I can drop from time to time to read LTS colleagues' very interesting posts, from which "not newbies-not LTS" people, just like me, find lots of interesting advises and informations to learn from.

Kind regards :-)

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love is blindness... a wonderful song!

LabRat

Good Thread Dennis! I think that doctors are just now discovering the long term side effects of the drugs we've taken in the past. Hence my screen name. AZTDDIEpivirD4TCrixivan (kidney stones and surgery due to this drug)Kaletra (one of my favs...constant diarrhea even with 2 doses of immodium per day)VireadSustivaIsentress

Plus the other drugs for OI's, drugs to counteract side effects, and more drugs to counteract the side effects of the first counteractive side effect drugs! A vicious cycle. LOL

Good Thread Dennis! I think that doctors are just now discovering the long term side effects of the drugs we've taken in the past. Plus the other drugs for OI's, drugs to counteract side effects, and more drugs to counteract the side effects of the first counteractive side effect drugs! A vicious cycle. LOL

Yup, you got that right, Yeah us LTS know this all to well, and we all have the fucked up bodies for proof, I know I'm one of the living dead, but I try not think about it so much

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"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

I think this thread needs to be resurrected so that those who are newly diagnosed and/or hesitant about starting a regimen for fear of the side effects (who always read the LTS forum) can see what they were fortunate to have missed out on.

Seroconverted: Early 80sTested & confirmed what I already knew: early 90s

Current regimen: Atripla. Last regimen: Epzicom, Sustiva (since its inception with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky )Past regimensFun stuff (in the past): HAV/HBV, crypto, shingles, AIDS, PCP

I think this thread needs to be resurrected so that those who are newly diagnosed and/or hesitant about starting a regimen for fear of the side effects (who always read the LTS forum) can see what they were fortunate to have missed out on.

Well we don't wanna scare anyone off, just the mire sight of some of us LTS is bad enough

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"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Seroconverted: Early 80sTested & confirmed what I already knew: early 90s

Current regimen: Atripla. Last regimen: Epzicom, Sustiva (since its inception with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky )Past regimensFun stuff (in the past): HAV/HBV, crypto, shingles, AIDS, PCP

Seroconverted: Early 80sTested & confirmed what I already knew: early 90s

Current regimen: Atripla. Last regimen: Epzicom, Sustiva (since its inception with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky )Past regimensFun stuff (in the past): HAV/HBV, crypto, shingles, AIDS, PCP

Thanks for the smile this morning. I agree with Solo, perhaps some of the newbies can see our history and have thanks for a one a day pill. I'm sure many of us don't even have that option. I believe it was the liquid Norvir that I could barely take and hold down, another medication that had to be refridgerated and yet another one that had to be taken every 4 hours. Critical not to miss a dose. What a joy setting the alarm clock to achieve that.

I can't recall, nor care to research, all the combos that I've taken but I know it's close to 15 different meds.

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Complacency is the enemy. Challenge yourself daily for maximum return on investment.

Thanks for the smile this morning. I agree with Solo, perhaps some of the newbies can see our history and have thanks for a one a day pill. I'm sure many of us don't even have that option. I believe it was the liquid Norvir that I could barely take and hold down, another medication that had to be refridgerated and yet another one that had to be taken every 4 hours. Critical not to miss a dose. What a joy setting the alarm clock to achieve that.

I can't recall, nor care to research, all the combos that I've taken but I know it's close to 15 different meds.

I remember going to the movies and hearing dozens of watch-alarms go off, and see a bunch of guys make a beeline for the lobby.

They didn't all come back.

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"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

AZT (6 capsules a day)Epiver (3TC) (two tablets a day)(Eventually switched to Combivir, which is the above two drugs in one pill, twice a day)Saquinavir (9 capsules a day with full fat meal and grapefruit juice)Crixivan (6 capsules a day - 2 every 8 hours precisely - on an empty stomach)Sustiva (1 pill a day)Reyataz (1 capsule a day)Norvir (one soft gel capsule a day)Lexiva (one pill a day)Isentress (current med) (one pill twice a day)Truvada (current med) (one pill once a day)

Goodness, I don't remember all the meds I've taken . Like Theyer, I have enough difficulty remembering my current ones. Which reminds me, I need to update my laminated list that I always attach for medical purposes.

I don't remember it's name, but the one that had to be refrigerated was the worst. Such a pain in the ass when taking trips.

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Complacency is the enemy. Challenge yourself daily for maximum return on investment.