Some musings of a mom….

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Monthly Archives: December 2016

Oh do we have snow! Not as much as they have been warning us about (although it’s not over, yet) but everything is white. You see the world in whites and grays in this winter wonderland. The light from the sun weaves its ambient presence among us and the world is much more quiet and serene. Even the local dump is pretty, covered in beautiful layers of snowy goodness! As we wander into the last days of this incredibly wild year, I have pondered what my next days will be filled with. I am not good with “resolutions” and even the word sounds so final. I rarely keep them. I intend to, which is the main thing, but my follow-through for an entire year is usually weak. And since I know that about myself, and am “of an age” where I can readily express that with no embarrassment, I do! Ha-Ha!

I do wish everyone a blessed and happy New Year. I pray that 2017 is a year of profound peace and prosperity, in whatever ways mean that to you. For me, I am seeking a return to what I somehow laid aside. I am anxious for inner peace – moreover, an inner contentment. It has somehow escaped me and I spend many nights tossing and turning, many days exhausted from a lack of good sleep, and an overall feeling of impending doom. That is no way to go through life. I am working on my health and my supplements! I know I need more vitamin D! I am working on that. We had a very successful experience trying the Whole30 elimination diet and we did so for 49 days, until Thanksgiving. Since then, we have both seen our overall health tank. The old aches and pains are back, some new ones cropped up, and we have an overall feeling of just plain, well, “yuck.” So in 3 days we will back at this Whole30 experience. You can google it, if you are unaware of what it is, and you can also look back at some earlier posts, when I explained in more detail what we are up to.

This year, we met a lot of new people and I can honestly say, our lives are the better for it. Our perspectives have broadened, and we have found areas that we want to grow in. It is wonderful, too, to find a group of like-minded individuals. While many of them have younger families, we have found a group where we are among our peers. And we both love being with people our age and life experiences. It is fun. And so in the coming year, we hope to strengthen these relationships, make many of these people close friends, and grow and learn many new skills. Living where we do, we are deeply intrenched in the seasons of the earth. Right now, in deep winter, we are all hunkered down and only occasionally getting together. I cannot wait for spring and summer – more opportunities to mingle, lots of new things to experience, and more people to get to know. And, we get to try our hand at a better garden this year!

One of the things I have learned this past year is that social media, while it can be a good thing, can suck you dry. It can pull you in, because perhaps you are lonely. It can take over your day. You can be so caught up in checking Facebook and emails, tweets and pins, that you forget to be present to those around you. You forget to live this life in the here and now. I do believe our computers aid us (I am typing this on my gorgeous, and purple, MacBook) but I also think that the ease with which they purport to make our lives, also complicates them. I can’t recall the last time I went days without checking things on either my computer or my phone. I deleted a bunch of apps off my phone the last few days. I decided it was just too much. Facebook Messenger was insane. Ugh. My phone beeps and tweets and sings to me all day long. Even when I turn off my notifications, something beeps at me. And I came to the realization that I sit far too long, looking at the activities of other people, and not having enough of my own. How silly is that?

So I am trying to keep a sort of “resolution,” in that I have deleted apps from both my phone and computer, and I am simplifying. I mean, for instance, I am down to 1 Angry Bird app. Period. And I am down to 1 solitaire game across all media platforms. That is progress my friends! I am seriously thinking of deleting my aquarium app, as I have 6 tanks and if I don’t feed those darn fish…well, you know. (Gross). But seriously. I am 60 years old. And I play Angry Birds. What is up with that?? I feed make-believe fish in make-believe aquariums. I think I knew I was going off the rails when I started breeding sharks in amongst the angel fish. I mean, how sick is that?? And what am I NOT doing whilst feeding imaginary fish and defeating imaginary pigs? I am not praying. I am not reading. I am not becoming a better me. Does Angry Birds help me get closer to God? Uhm, no. I think He is probably shaking His head at my silliness.

We are all called to be His children. We are all called to share the Word of God with those around us. We are all called to help our fellow man. Angry Birds does not do any of that. I spent an afternoon canning with some new friends this fall. In a very out-of-the-way place (where there was not even navigation in my car or phone reception, and yes, I got momentarily lost as I journeyed home) with some wonderful new people in my life. The conversation was great. We shared stories and we laughed. The skills acquired were really a re-introduction to canning, as I had not done it in years. But the skills shared, the wisdom in that cabin, has stayed with me. And I hunger for more of the same. These were some real people and I felt so welcome and so “at home.” We shared, with one another, the gist of who we are in the simple tasks of washing black currants, and boiling water, of making coffee, and slicing and blanching carrots. What a simple joy that afternoon was. And it profoundly struck me. That is what I want more of.

Do you know I have only been shopping in our one, large mall here 1 time? Guess what? I have no desire to go there. At all. I’ve never been a shopper, and I am really growing to hate crowds of people. But you know what I am anxious for? What I want to do? What I am excited for? Getting together to cook and make some scrumptious recipes with some of my new friends. We’ve been teasing each other with recipes! I am looking forward to some shooting lessons. I desperately want to feel more confident in my basic skills in regards to being prepared for our next “snowmaggedon” or our new volcanic eruption, or the next big earthquake. Learning to freeze foods; learning to dehydrate foods. Canning, in all its glory. Planting a well-thought-out garden. These things excite me.

As we age, our dreams change. I no longer foresee a house in a development, or master-planned community. I envision a place with space around it. It doesn’t have to look like anyone else’s home; it doesn’t have to please anyone else. But I would like it to to be simple, serene, and away from the “maddening crowd.” I dream of a log cabin, although I am aware of how much adjusting and upkeep they require. I don’t need my own lake or river, but it would be nice to have one close by so my dear husband can grab his fishing gear and walk down to the water, and relax while challenging the salmon. I would love to have space so he can hunt if he wants to, without having to drive miles upon miles to do it. And I want a space where others feel welcome and want to come and hang out. Even if it is simply for some card games and coffee. I would like my forever home. Because I am so very tired of moving. I want my roots in this land to go deep. I want a home where my grandkids will someday say, “Remember grandma and grandpa’s house in the woods where we got to fish and run around?” I want to make those memories with my grandchildren, and with my children, and my husband. I want inner serenity. I want peace and contentment. I certainly don’t want millions of dollars and all that it requires to take care of it. I want to be safe and comfortable, in a space where I can host others, and share some peace and laughter with them.

“Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.” John 14:27

And so for 2017, I wish for you the same. The peace the world cannot offer; the peace of Christ. I wish for all of us, to have fear leave us and for contentment to find us. I pray the world will calm down and we can each find this peace in our own little corner of it. For some, it will be an apartment in the middle of a vast city, driving to and from on complicated highways and byways. For others, it will be on farms and rural homes. Still others in suburban hideaways, where they can escape the madness of their commutes. But at least once a week, I pray we can all find our way to kneel before the One Who created us, to give thanks, to be humbled, and to enjoin with Him Who gave us life and breath, and hearts to love. “Our thoughts determine our lives” (Elder Thaddeus) is something I try to live by. If we all have thoughts of peace and we share them, peace will emanate from us and fill those around us. One way to find peace is to seek the quiet and serenity wherever, and whenever, we can. For me, I think I will slowly unplug from the rat race. I may still play a round or two of Angry Birds, but I am trying to rein that in, too. I know that waking early, spending some time reading the Word of God and having a chat with Him, starts my day off right. I also love to enjoy a quiet cup of coffee, and a little time with my husband before he is off to his day. These good habits that ground us are often hard to come by, and hard won. But they give us peace and prepare us as we enter into the work the Lord has given us for this day. And for me, I will take these “resolutions” and tackle each day, one at a time, as I resolve to find peace, contentment, and work on all these new things and new people in our lives. “…Do not let your hearts be troubled…”

God’s blessings on you and yours as we wade into this new year – 2017.

My mom has “stage 3” Alzheimer’s disease. It is not static; it is progressing. And so, I had a long chat with my sister yesterday. I call her my sister, but she is officially my “step sister.” And that seems just weird to call her that. We are sisters in our hearts. And she does not have a sister from her parents, and neither do I – it works out perfectly. We met when we were both in our 20s. Our parents fell in love and began living together, and after much pressure from us kids, were eventually married. My mom’s husband, aka my other dad, passed away just three years ago, from a very short and ugly bout of cancer. And it seems like he’s been gone forever. He will always leave a hole in our lives. To my children, he was their grandpa, not their grandma’s husband. He always made sure to let each of us know how much he loved us. And we all returned that love. He was an incredible man. And he loved my mother so very much. She knows he is gone. She kisses his framed photo each morning upon rising, and each evening at bedtime. My sister reminds her so very much of him. And she loves my sister as her own; even loving all of her husband’s grown children as her own. And her grandchildren through him, too. My mom was diagnosed with Alzheimer’s a couple of years before my stepdad became ill. But at his death, it became obvious we could not let her live by herself. So, we moved her to a retirement home just after my stepdad passed away. My brother could not take her, and I live thousands of miles away. She is so attached emotionally to my sister, and we gratefully found a place just 5 minutes from her house, in sunny Southern California.

Today, we came to the conclusion that where my mom is living is no longer working. We’ve skirted this issue for months now. Not only is she beginning to require more care, and this facility is not a memory care facility, but she is also no longer happy there. She knows she is not with her family. (She calls it her “prison.” She says it’s a beautiful one, but it is still a prison). She is missing the interaction with her kids and grandkids, and even the great-grandchildren she has. And we came to the almost inevitable conclusion that we need to move her up here, to be with me (I am the oldest and sort of expected this to happen – eventually). But, to actually live with me. And now my stomach is in knots. We are almost an empty nest, and I just turned 60 years old. My mom is 87 and healthier than I am (other than this horrific disease)! I. Am. Scared.

God never gives us more than we can handle. I know this. I do. He also has a great sense of humor and irony. Do you see that flower up there? The Forget-Me-Not? It is the flower of the Alzheimer’s movement, as is the color purple. I recently got my first tattoo (don’t be too shocked) and it is purple. I love purple. I reside in Alaska. Do you know what the Alaskan state flower is? Yep – the Forget-Me-Not. See? God is smiling at me and my panic.

“…but if any widow has children or grandchildren, they must first learn to practice piety in regard to their own family and to make some return to their parents; for this is acceptable in the sight of God.” 1 Timothy 5:4

“Honor your father and your mother, that your days may be prolonged in the land which the LORD your God gives you.” Exodus 20:12

“Even to your old age I will be the same, And even to your graying years I will bear you! I have done it, and I will carry you; And I will bear you and I will deliver you.” Isaiah 46:4

“But if anyone does not provide for his own, and especially for those of his household, he has denied the faith and is worse than an unbeliever.” 1 Timothy 5:8

On and on go the admonishments to care for one another. The admonishment is not just to our own flesh and blood – “So then, while we have opportunity, let us do good to all people, and especially to those who are of the household of the faith.” (Galatians 6:10). We need to be taken outside of ourselves and our own needs, to care for the “least of these.” (Matthew 25:10). And I am being called in a very personal way, to care for my mom. And still, I am scared.

It’s rather ironic that we just celebrated our youngest son’s 18th birthday and are talking almost daily about his future and college and becoming an adult…yada yada yada…and then I talk to my sister. I jokingly offered to let my mom live with her. She said that she and her husband are actually thinking of retirement and selling their big house…maybe even living in a motorhome for awhile. They love having an empty nest. Ha-Ha. Further irony? We downsized when we relocated here. We gave away and sold everything and put what we could squeeze into a 25-foot u-haul trailer to live here. My husband and I were recently discussing our dreams of a camper/trailer we could haul all over the state, going from fishing hole to fishing hole, in our old age. Sans kids. Possibly allowing grandchildren! Ha-Ha.

I am flummoxed. There is just so much to consider, becoming the caregiver of an elderly relative. We did that for my paternal grandmother. We still had all our kids at home. She lived with us during her final stages of life, which ended up being just a few months. The house we owned was large enough to accommodate her and her hospital bed, as well as all the other equipment and space she needed. We met an amazing hospice staff and they came and went at all hours of the day and night. But it was such a blessing to share in that with my grandma. I treasured those last months and moments with her. I was glad to do it. I loved her dearly, and still I miss her. She made us laugh all the time. She was like a second mother to me. My mom and I have always had a rather contentious relationship, because I am somewhat like her, but also like my dad. I infuriate and frustrate her because of how much I am like my dad, her ex-husband. I moved out the moment I was 18 and only moved home when I was around 20-21, coincidentally right when my brother moved out to get married, and my dad left. I was there with her through her divorce and subsequent bout of breast cancer. But that was more than 40 years ago now. We held each other many days and nights, mourning the loss of our family unit, and her health. It was a devastating time for both of us. My mom is not a quitter. During those months of radiation and chemo, she announced, “This is not what will take me out.” And she meant it. She fought cancer with everything she was. She asked the American Cancer Society to leave our house one afternoon, disappearing into the back of the house. She called me back to her and said, “Please ask them to leave. If I listen to how depressing they are, this disease will kill me. And I have no intention of dying. Get rid of them!” And I did! She is cognizant that she has Alzheimer’s. She hates it. When she is lucid and we can talk about it, she bemoans the fact that she knows she forgets things and people. She thinks others will think she is stupid, because she cannot remember them or events. We re-assure her that she is not stupid. We just repeat things so she can grasp onto them. But nowadays, that ability to grasp new things is passing her by. And her ability to remember all of the people in her family is also passing her by.

Alzheimer’s is one of the worst diseases I know. My mom is a healthy woman. She isn’t on medication, except for the Alzheimer meds, which are no longer effective. She has only gone to doctors for illnesses, like her cancer or when she hurt her shoulder and needed surgery. She rarely even catches a cold. But this disease is ravaging her mind. And it hurts to see. If my mom knew she was like she is, she would hate it. She was always so put together. Her outfits always matched. She still wears matching jewelry, even if it is the same couple of pieces every day. She always wears make up (which I don’t even do) and her hair is always done just so. She used to iron her denim pants. (She never calls them jeans). My mom is a proper, little, British woman. And her life in New Zealand and her years as a young woman are now where she is living, mentally, most of the time. And it makes me so very sad. She remembers the 60s and 70s…she recalls outfits and events from the 1950s. But she does not remember some of the people she knows and loves. And that is hard. And I am scared of having the responsibility for her. Total responsibility. It is almost like thinking of having another baby in a couple of months, at my age.I just had a grandchild! My fifth. That I can do. But this? It intimidates me.

And every time I forget something, I wonder if I am getting this disease. Each time life gets confusing, or when I try to recall something and can only conjure a white wall in my mind, I am fearful. Will this be my fate? My dad is now 90 and has dementia. Because it is a type and function of Alzheimer’s disease, and it is on both sides of my genetic tree, will this be me in 20 years? My mom is only 27 years older than I am. Am I headed in this direction, too? How will I care for my mom if I start slipping away? Will my husband, or my sons, be burdened with all of my family? Will I become that which I fear in my mom? That is a terrifying thought.

But back to my panic and my faith. Back to my current reality. I know that the Lord will watch over us. I know that He intends for us to bond, as a family. Caring for my mom takes me way outside of my comfort zone, but perhaps it is where I need to go. One of my friends, and a leader in my company, said in a live feed yesterday, that whatever it is we are fearful of, is probably what we need to tackle next. And I am deeply fearful of taking care of my mom. My entire world will be turned upside down. We will have to move. Seriously. Like in the next few months move. And packing up this house and relocating again – I am seriously tired of moving. Horribly tired of moving. I don’t know how many moves I have left in me. It’s that bad. We’ve been here for almost 5 years, so I guess it’s time! Ha-Ha-Ha. But this move is so very different. This is a necessity for my mom. For her last years. I am not ready to say goodbye to my parents, to my mom. It frightens me because it is sort of like a final curtain; a devastating ending. I know it is inevitable. I know time marches on and we all come to an end. But having it thrust into your face, into your little cocoon, that is a different experience. I love my mom. Sometimes I need my mom. But she is no longer capable of being my mom, in the sense of me relying on her. And I know, that in her lucid moments, being dependent on me is not something she is comfortable with. Getting in a nurse to assist her is not something she will like, but having me bathe her or dress her would make her even more uncomfortable, although I have done it in the past. The first time I saw what her mastectomy honestly was, and when I had to assist her with her bandages, I broke down (literally fell onto the floor) and just cried. She was standing there, wet and naked in the bathtub/shower, trying to comfort me! My mom is an amazing woman, truly she is. Difficult? Yes. But I will treasure those moments when my mom held me while I was sick. When she held me as I wept. When she comforted ME – over the loss of her breasts and her health and her marriage. My mom has done so much for me, just being her, in all that she is. And I am so not ready for this last stage. Being with my mom, as her caregiver, is almost as frightening to me as losing her, once and for all.