"Life is what happens to you when you're busy making other plans." – John Lennon, Beautiful Boy

Craniofacial Clinic is one of Calvin’s annual check ups. He has been going to these clinics since he was just three months old, when he was first diagnosed with 22q11.21 Deletion Syndrome. We have attended CF clinics at Kaiser Oakland, Lucille Packard Children’s Hospital at Stanford, and now at Duke Children’s Hospital. Calvin attends these… Continue reading CF Clinic 2017

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Last week James and I celebrated our 10th wedding anniversary! Ten years ago on 07/07/07, we exchanged vows in my home church in Georgia and the next day we were off on our honeymoon to the Outer Banks of North Carolina with a Hobie catamaran, borrowed from the GA Tech sailing club, in tow. To celebrate… Continue reading Camp Granny and Danpa

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It’s summerrrrrr!!! Summer is my FAVORITE y’all. Love the sun. Love the heat. Love the break from school. Love pretending to be a SAHM again even just for two months 😉 Olaf and I are on the same page about summer. With sunscreen of course. Towards the end of the school year, when people… Continue reading Summer High Five

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“I’m FIVE!” paired with a hand held up to show five little fingers is Calvin’s latest greeting to most people, even the people whom he has already told many times that he is now 5 since his birthday a month ago. (For the month leading up to his birthday, his standard greeting was “It’s almost my birthday!… Continue reading “I’m FIVE!”

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Calvin’s diagnosis of 22q was a big surprise to us. Henry’s diagnosis of Dup15q was bigger than a big surprise – it was a total shock. But this past January, Henry recieved another diagnosis and this time it was one that we did see coming. By far most individuals with Dup15q syndrome are also diagnosed… Continue reading A Diagnosis We Were Ready For

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Cold and flu season has been BRUTAL around here. Ever since November, Calvin and Henry and I have basically been taking turns ailing with one illness or another. James has gotten the occasional cold or bug, but he has managed to stay much healthier than the rest of us. I blame school. The worst was… Continue reading Snow Days and Sick Days