IACC Autism Spectrum Disorder Research Portfolio Analysis: Project Listing
Project Id Project Number Sub Project Number Funder Principal Investigator Project Title Project Description Fiscal Year Funding Category Subcategory Strategic Plan Objective Objective Status Code Arra Funded? Federal/Private Institution State/Country Project Status Web Link 1 Web Link 2 Web Link 3 Active Current Award Period
Project Id: 4198 5R01MH077000-04 None National Institutes of Health Mandell, David Interstate variation in healthcare utilization among children with ASD This large national study will identify the impact of state level autism-related policies on the publicly funded healthcare utilization of children with autism spectrum disorders (ASD). The primary aims of the study are to conduct an intensive examination of state policies and practices that may affect Medicaid-reimbursed healthcare delivery to children with ASD, to provide accurate national and state-level estimates of publicly-funded healthcare utilization among children with ASD, and to examine the relative contribution of demographic, clinical, and system-of-care characteristics on the types, intensity, and patterns of related service use. This study will set the stage for future studies in which service utilization data from other systems and primary data about families' experiences and outcomes are linked to data on healthcare. The study also will provide a baseline against which to measure the effects of future system-level interventions. Finally, the results will provide evidence for a conceptual framework for understanding how states address the needs of children with chronic disabilities in which the best course of treatment and expected outcomes are uncertain. $489,354.00 Services Services Utilization and Access Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Federal University of Pennsylvania Pennsylvania Ongoing http://projectreporter.nih.gov/project_info_description.cfm?aid=7793518&icde=6660718 No URL available. No URL available. active 2007-2012
Project Id: 4191 n/a None Center for Autism and Related Disorders Tarbox, Jonathan The effects of breaks in services on skill regression in children with ASD A regression analysis of the effects of the duration of breaks in behavioral services on the degree of skill loss after those breaks, as well as on the duration of time required to recoup the skill to pre-break levels. $19,105.00 Services Services Utilization and Access Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Private Center for Autism and Related Disorders (CARD) California New No URL available. No URL available. No URL available. active 2010-2012
Project Id: 4193 R40 MC 20172 None Health Resources and Services Administration Bruder, Mary Beth A parent to parent model of support and service coordination for families of preschool age children with ASD This research project will assess the effects of a culturally compatible parent to parent model of support and service coordination for families who live in Hartford CT with a preschool child with ASD. $300,000.00 Services Family Well-Being and Safety Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Federal University of Connecticut Health Center Connecticut New http://www.mchb.hrsa.gov/research/project_info.asp?ID=159 No URL available. No URL available. active 2010-2012
Project Id: 4197 1F31MH091833-01 None National Institutes of Health Daniels, Amy The relationship between state EPSDT policies, well-child care and age of autism This is an individual National Research Service Award for pre-doctoral research training, which provides support for promising doctoral candidates who will be performing dissertation research and training in a scientific health-related field. Early identification of autism is critical to achieving the best possible outcomes for children. Delayed diagnosis translates into a missed opportunity to provide crucial services to reduce the disorder's severity and improve developmental outcomes and quality of life. Efforts to reduce age of diagnosis must be informed by a broader understanding of the mechanisms through which policies affect health practice and the extent to which health practice leads to improvements in child health outcomes. The proposed study will address these issues through the following questions: 1) To what extent do states' Early and Periodic Screening, Diagnosis and Treatment (EPSDT) policies affect child-level compliance with American Academy of Pediatrics (AAP) guidelines for well-child care?, 2) Are children with autistic disorder whose well-child care complies with AAP guidelines diagnosed earlier?, and 3) Is having a usual source of care independently associated with age of diagnosis, independent of adherence to these AAP guidelines? These questions will be investigated through an in-depth examination of service use claims over the two-year period prior to diagnosis in a sample of preschool- aged children who were enrolled in Medicaid sometime between 2001 and 2005. The proposed study has the potential to affect public health policy and intervention strategies in the areas of well-child care and the early detection and diagnosis of autistic disorder. In addition, findings may help to inform state policy decisions relative to the allocation of resources for the early detection of autistic disorder. $41,380.00 Services Services Utilization and Access Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Federal Johns Hopkins University Maryland New http://projectreporter.nih.gov/project_info_description.cfm?aid=7998056&icde=8955761 No URL available. No URL available. active 2010-2012
Project Id: 4199 5R01MH089474-02 None National Institutes of Health Solomon, Olga Autism in urban context: Linking heterogeneity with health and service disparities Although heterogeneity inherent in autism spectrum disorders (ASDs) has long been recognized, little is known about ways in which race, gender, socio-economic status, family culture, and communication during clinical encounters affect the acquisition of diagnosis and related services. The project examines disparities in ASDs diagnosis and services for African American children in an urban setting by following a cohort of African American children living in the Los Angeles metropolitan area diagnosed with ASDs, their primary caregivers, and the practitioners who serve them. Results of the project will help caregivers and practitioners to better communicate and partner during clinical encounters. The project will facilitate earlier diagnosis and services for African American children with ASDs, which will help improve their developmental outcomes. $613,127.00 Services Services Utilization and Access Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. Yes Federal University of Southern California California Ongoing http://projectreporter.nih.gov/project_info_description.cfm?aid=7937016&icde=6646190 No URL available. No URL available. active 2009-2011
Project Id: 4196 R40 MC 17158 None Health Resources and Services Administration Thomas, Kathleen Autism insurance policy and access to care for children with autism: A state level analysis This secondary data analysis project uses data from the 2005-2006 National Survey of Children with Special HealthCare Needs (NSCSHCN) and data on state autism insurance policyfeatures to allow an analysis of the association between state autism policy and access tocare for families with children with autism compared to families with children with otherspecial health care needs. $100,000.00 Services Services Utilization and Access Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Federal University of North Carolina at Chapel Hill North Carolina New http://www.mchb.hrsa.gov/research/project_info.asp?ID=128 No URL available. No URL available. active 2010-2010
Project Id: 4194 R40 MC 17170 None Health Resources and Services Administration Crimmins, Daniel Medical service utilization by Medicaid-eligible children with autism in Georgia: An analysis of one year of claims and provider data This secondary data analysis project examines the medical service utilization patterns of childrendiagnosed with autism living in urban and rural areas of Georgia using Medicaid fee-for-servicedata. $100,000.00 Services Services Utilization and Access Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Federal Georgia State University Research Foundation Georgia New http://www.mchb.hrsa.gov/research/project_info.asp?ID=134 No URL available. No URL available. active 2010-2010
Project Id: 4195 R40 MC 19927 None Health Resources and Services Administration Parish, Susan Racial/ethnic disparities in family burden & health care of children with autism This secondary data analysis project uses data from the 2005-2006 wave of the National Survey of Children with Special Health Care Needs to examine racial/ethnic disparities in family burden & health care of children with autism. $98,962.00 Services Services Utilization and Access Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Federal Brandeis University Massachusetts New http://www.mchb.hrsa.gov/research/project_info.asp?ID=156 No URL available. No URL available. active 2010-2010
Project Id: 4192 R40 MC 19928 None Health Resources and Services Administration Augustyn, Marilyn Use of a family navigator in families with children newly diagnosed with autism spectrum disorder This RCT is to determine whether use of an evidenced-based strategy, Patient Navigation, for families of young children newly diagnosed with autism spectrum disorders (ASDs), improves the services the children receive, decreases the burden of parenting stress, and improves family functioning. $299,906.00 Services Family Well-Being and Safety Question 5: Short-term Objective A Green dot: Objective has greater than or equal to the recommended funding. No Federal Boston Medical Center Massachusetts New http://www.mchb.hrsa.gov/research/project_info.asp?ID=155 No URL available. No URL available. active 2010-2012
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