... Once (and still) Infertile, but still Schnarky as hell. This blog is dedicated to the daily ramblings from the mind of Nancy. It isn't about anything profound in the grand scheme of things, but it ~is~ about things in my life, schnarkiness always included. I have a second blog, listed in my profile, but the blogs will continue to remain separate.

"I'm aiming for heaven, but I'll probably wind up down in hell"

Tuesday, December 13, 2011

Surgery #23

(first off, thanks for giving me the links to your blogs. I'm going to get them in my reader and start reading!)

It may not be #23 if some other wacky thing happens to me before then, but I know this surgery is in the future for me.

Long story much shorter in easy to read bullets ...

~ A few months ago, I suddenly got this feeling in my right ear. It felt like it was a bug. Horrible. Doc checked, no bug, ear infection, antibiotics.

~ 2 weeks later, still feels like a bug. Having a few dizzy spells. Hearing almost underwater type sounds. Back to doc. Nothing. Referred to ENT.

~ 2 weeks later, see ENT. Nothing. Even under microscope. Hearing tests show an uncommon type of hearing loss, low-frequency conductive hearing loss. Both audiologist and ENT were a bit suprised. If condition continues, refer to the next level of doctors, the neuro-otolaryngologist.

~ The feeling in ear is happening 25+ times a day.

~ See Neuro-otolaryngologist. First thing he wants hearing test redone, not believing the one ENT sent him. Tested. Same. He then performs all sorts of tests. Seems when a vibration is put on my head behind my ear, my eyes do the wrong movement. Same thing when my ear is pressurized. Sent to get a CT scan.

~ Back to Neuro-otolaryngologist after CT performed. CT confirms I have a "very rare" condition called "superior canal dehiscence syndrome". (bone at top of ear is partially missing, literally wron down by the brain.) Awesome.

~ Fixing would take surgery following these steps: 1. cut a piece out of my skull behind ear 2. break an ear bone. (The pinna? I forget) 3. lift up MY BRAIN. 4. replace missing piece of bone. 5. situate my brain once again. 6. fix the bone they had to break. 7. plug up the whole in my skull.

~ I know it's not technically "brain surgery", but the fact they have to touch it at all freaks me out. Since my symptoms aren't too bad right now, we are giong to skip the surgery. But he said my symptoms will most likely just get worse and when dizziness and/or hearing problems start affecting my quality of life, we'll do the surgery then. Next appt to check symptoms is in Feb.

Have been reading for awhile, not sure I've commented much in the past. Ugh you know the only good point of this story? That the doctor actually figured out what was wrong. Would've sucked if you went back and forth to all of these doctors and no one came up with anything and thought you were crazy. Been there, done that and lots of money spent.

About Me

I am a 39 year old woman. I am the mother of two beautiful daughters and a handsome son. I am a career woman. As for my TTC world, it certainly doesn't seem like I am "infertile", but I fought for my pregnancies and my TTC/IF history is on the sidebar.
I have two blogs, which are both listed in my profile. One focuses on my daily life - including IF, TTC, pregnancy, delivery and even some "children mentioned" posts. The second blog is ~soley~ posts directly about being the mother to my three children.

Mar 08 ~ IVF #1, Transfer Cancelled due to lining. Out of 15 eggs, 9 were mature and all 9 fertilized. I have named my 9 embryos "The Mod Squad" and they are in the freezer, waiting for mommy to be ready.

Apr/May 08 ~ FET #1. C20. 4 embryos "The Fab Four" transferred on 5/05. BFP!!! Very Low Beta (15 at 11dp3dt) but the numers continued to double every 48 hours. Told it was "most likely not viable" and later "most likely ectopic" but we beat all the odds.

Jan 09 (38w0d) ~ Karl is born! -- Crazy 3 days in hospital. Manual version to flip baby from breech to head down, Labor, Delivery, Emergency surgery due to cord detaching from placenta, Scary heart issues from losing over 40% of my blood supply, and then a blood transfusion due to the extreme loss of blood. Whew!