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Sandy, I have moved to a house in the country. Although I have a crazy 82 year old neighbor, it's a lot better than living in the city for me. The boyfriend's hands are healed now, and by a miracle of God, when he got off state disability, he was able to get unemployment benefits. Currently, he is looking for work. He wants to go to night school and look for work during the day. He wants to get certified in what they call pipe welding. I am retired now, but think I will have to get a p/t job to make ends meet and to live a little more comfortably. I can only make so much though, or I lose the health insurance I have and I can't let that happen with the Lupus and other health issues going on. Thanks for your message.

Hi everyone! I'm still alive. I promist to send you all messages really soon. Probably over Christmas break. I hope you all have great holidays and are doing well. You are all in my thoughts and prayers every day. XOXO

HI SANDY!!!! I MISS YOU SO MUCH!!!! SORRY ive been MIA!!!! HOW are you my friend? I have so much going on more than ever! I have MS now as well as the lupus and sjogrens! They are still worried about cancer too because som tests from 2 weeks ago came back bad so im going in for more in january. My dr doesnt want me to wait but i NEED a break from appts and tests at least for the holidays! Whats another month! Im getting headaches real easy these days, i have bad head tremors and i cant speak well due to the MS, so im limited on how much i can use my brain without it all kicking in! So its hard for me to be on here too long. IT MAKES ME SAD but im going to TRY to be around here and there MORE OFTEN! I MISS EVERYONE!!!!! Please BE WELL and im HAPPY TO be in touch with you again!!!! LOVE and HUGS! Jeannette XXXOOO

Recent Entries

I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired