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1. White papers, articles, etc.

1.1.1. How the Cleveland Clinic uses its patient insight community to talk to stakeholders about topics that affect them

1.2. Bridgespan's "From Input to Ownership"

1.2.1. How nonprofits can engage with the people they serve to carry out their missions

1.3. CNS Foundation's "What is a Citizen Scientist" post

1.3.1. About the public's role in scientific advancement

1.3.2. CNS Foundation encourages our community to become citizen scientists through the Pediatric Brain Mapping Project and help identify the millions of children worldwide with pediatric neurological conditions.

1.4. David Allen's "The Threefold Nature of Work"

1.4.1. You have a choice of doing three very different things when you work – pre-defined work, ad hoc work, and defining your work.

2. On the subject of delegating

2.1. roughly 3-minute video introducing some interesting work done by Julian Birkenshaw (London School of Economics) and Jordan Cohen (PA Consulting) about effectively addressing “the work that matters.”

2.2. this Bridgespan piece about The Management Center's work on how to delegate successfully.

3. Human-centered design basics

3.1. IDEO's Human-Centered Design Toolkit

4. Tools for gathering input from constituents.

4.1. SurveyMonkey online survey software

4.2. Survey design best practices guide from SurveyMonkey

4.3. Harwood Institute's Turn Quiz

4.3.1. Is your organization focused inwardly or outwardly?

4.3.2. The Turn Quiz helps you think about what it looks like to Turn Outward.

8.2. Individuals

8.2.1. Mark McDonald

8.2.2. Clay Shirky

8.2.2.1. writes and teaches about the social and economic effects of Internet technologies

8.2.2.2. 2010 TED talk re: cognitive surplus

8.2.3. David Allen

8.2.3.1. Personal productivity guru. Author of Getting Things Done.

8.2.3.2. GTD Times: the official blog for the David Allen Company

9. INSIDERS: OUR ORGS

9.1. 5-sector map-in-the-making

10. INSIDE-OUTSIDERS

10.1. Inside-outsiders are would-be workers /service providers who have a personal stake in how well or poorly our kids fare. While they don't currently work in or for our organizations, they may be familiar with them. They're part of the neurological disorders "community."

10.1.1. Here I'm thinking almost exclusively of parents and family members of kids with CP or other brain disorders or conditions. There are 14-18 million such kids in the US.

11. OUTSIDE-OUTSIDERS

11.1. I define outside-outsiders as organizations or individuals who may be willing and able to take on outsourced work from organizations in the CP arena, but who don't have any prior commitment or connection to it.