Cancer Survivors Network - Comments for "Very interested to read stories of uterine tumour&gt;&gt;mets: Positive experiences"https://csn.cancer.org/node/208911
Comments for "Very interested to read stories of uterine tumour>>mets: Positive experiences"en-csnES >> tdch4https://csn.cancer.org/comment/973748#comment-973748
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<p><em>In reply to <a href="https://csn.cancer.org/comment/973102#comment-973102">Epithiliod sarcoma</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Marie,<br />
thanks for your reply, this is my first time writing on this support network and I agree, it's easier to express yourself to people who have no family connection.<br />
I think it's equally as awful for you in a different way, as your husband. My Partner is ALWAYS worried about me and I feel so sorry for him, wish I could make it all go away for his sake!<br />
I keep telling my partner to go to a support group but he's too busy at work and can't face going back out after he comes home in the evening. We don't have any children (I never thought I'd say this but I'm glad, it means I don't have to worry about them, in fact, my whole life is spent avoiding anything that will worry me!)and our dog died 3 months ago so the house is horribly quiet but I'm able to cope with that. I spend lots of time relaxing and sort of meditating. I think it helps to visualise the nodules and tell them to stop growing! After all, they didn't come from outer space, they are mine! Maybe I have the ability to control them? At least I can feel I'm doing something. Oh, I've babbled on as usual! Keep in touch and oh I wish you both all the best for 25th xx Caro</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/208911%23comment-form">Log in</a> or <a href="/user/register?destination=node/208911%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 03 Jan 2011 16:24:56 +0000caroscotcomment 973748 at https://csn.cancer.orgEpithiliod sarcomahttps://csn.cancer.org/comment/973102#comment-973102
<a id="comment-973102"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/208911">Very interested to read stories of uterine tumour&gt;&gt;mets: Positive experiences</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi my story is about my husband, he had six operations to his right hand over a two year period. Found out last March that it was not an infection like the surgeons had thought but Epithelioid Sarcoma. Very rare but most common hand cancer.<br />
It was a really big shock as we thought he was over the worst and we were just so pleased with skin grafts. He had six rounds of doxirubicin i think this is adriamycin and 20 rounds of radiation to hand. It had spread to lungs and lymph nodes and his results have been no change. nodules in lungs lots of them are the same size which is apparently good news. He has had two small growths removed from face and leg and gets biopsy results 25 January. We are praying they were not connected to sarcoma. He is doing well at the moment, radiation stopped regrowing sarcomas on hand, but we are always worried about lung mets. If there is more growth he will be offered ifosphomide as a last attempt of slowing it down. We just pray it han't changed on next scans in March.<br />
It is a horrible waiting game but we try to stay positive. Never heard of sarcoma before last March but know plenty about it now. Hope your results are good on Wednesday, please keep in touch i think talking to strangers is so much easier than family some times<br />
Marie</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/208911%23comment-form">Log in</a> or <a href="/user/register?destination=node/208911%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 02 Jan 2011 15:10:18 +0000tdch4comment 973102 at https://csn.cancer.org