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Fibromyalgia can be a form of metabolic myopathy. I am diagnosed with fibromyalgia and also a customer of 23andMe and I have found out from my rawdata from 23andMe that I have a mutation that causes AMPD1 deficiency and the symptoms is similar to them of fibromyalgia. Homozygote rs17602729(A;A) individuals can experience muscle cramps, muscle myalgia and have lower energy.

Whether fibromyalgia is caused by a genetic mutation or something in the environment (or, more likely, a combination of the two, aka epigenetics) what we really need to know is what to do now.

I take extra magnesium since magnesium is needed for ATP production. I also try to stick to my SWAMI as closely as possible, so my body doesn't need to work hard clearing toxins from food as well as dealing with the fibromyalgia. I try to get enough rest and manage stress (both a challenge as a single parent). Exercise is an even bigger challenge, since it needs to be balanced with getting enough sleep.

Just read an interesting article that suggests a fibromyalgia is linked to exposure to sulphites... The Sulphite Connection: Top 10 symptoms to identify if sulphites ... thesulphiteconnection.blogspot.com/.../top-10-symptoms-to-identify-... - Cached

To quote the owner of the site...who spent 2 decades looking for an answer to healing Fibromyalgia... "I tried just about everything and while most things made some change it wasn't until I accidentally discovered that there are sulphites hidden and undeclared in most of our foods that I really noticed permanent change. It happened over night, one day I had Fibromyalgia the next it was gone. That was over a year ago and today I am still symptom free and my immune system has improved, I've lost over 20kg, my energy levels have exploded and I feel and look the most fittest and healthiest of my entire life..."

Personally I have read that fibromyalgia is a relatively recently diagnosed condition... & have often wondered if there was a connection between sulphur/sulphite & salicylate sensitivity & possible conditions like it...

The really scarey thing is that I have also heard that Big Pharma often discovers (sometimes deliberately & sometimes accidentally) medicines/treatments for something that does not yet exist!! They then set about "manufacturing" the relevant disease/virus/condition etc so there is a market for the various products associated with relief of same??!! Of course like with cancer treatments, they are careful not to publish a cure as such, so they can guarantee themselves an ongoing market?!

This makes sense in the fairly recent overuse of sulphites in processed foods & the (cross)breeding of fruit & vegs to be even sweeter & higher in salicylates (reactions to both of which seem to be similar, if not related) & the growing increase in fibromyalgia sufferers??!!Also not forgetting the long fought battle by Erin Brockovich for the ban of and Endosulfan (sulphites) pesticide...http://www.news.com.au/feature.....frflp0-1226075604359

FM is as much a mental brain malfiering as it is caused by food or things we eat.

That whole list above is for all who need a label. Find the foods that cause them and the label will go away.

For me the simplest test is HOW I feel. Sometimes it is confusing, like when I have headaches , a pill will work, but so will coffee, sometimes even decaf.. but it is on avoid for me.. so what to do?

coffe makes me drive 5 miles faster for every cup.. but it also helps when exercising, but a little goes a long way,.. coffee as served in many places is way to strong and would cause other issues such as needing milk products to 'cut' the bitter taste, or asking for sugary stuff to balance the taste, so is coffee bad or the stuff one eats to go along with it which then causes digestive issues? whenever we eat some food that is 'avoid' we stress our intestines and create reactions like hives, on the outside or on the inside causing breathing difficulties..

The list above can almost allways explained in relation to what one ate the day before.

It takes time to sort things out and to eliminate the avoids and make room for the Super/Diamond and Beneficials.. and it takes time to adjust the weight and activety levels we struggle to correct, after the many years of eating avoids..

low energy and cronic fatigue are the same type label, when all else fails those two are what is used for medical billing. good for your money, but don't buy into them unless you are looking to get a pill.. pills cover the simptoms but rarely fix the issues. Supplements all to often don't fix things either..

pain is real and so is fatigue, I have had both and know that only eating right is my cure. when I transgress I pay a price.. some in 10 minutes other the next day. for sure the body knows and reacts!

and just when you look at all the foods and become totally compliant, then it is time to also look at emotional components, and hormones reactions from to much or to little..... and fix the inner part within that causes pain. Take time to relax and think of all the places in life that you or others have held you back, pushed emotions down or expected more .. then identify the exact space/spot on your body that still feels the (involuntary muscle) constriction, sort of a trigger point that never had a chance to heal.. IT is those places that hurt at odd times, and nothing will fix them unless you can close your eyes for a moment and ask the body to help make changes.. takes only seconds , but the number of 'insults' are many.. so be patient..... sometimes it takes years to figure things out, but if you can slammmmm on old car door, (they used to be strong) then maybe much of your pain might just be left behind. --- but only when good food replaces avoids..

......Soft tissue /flesh and skin pain.. yes and some develop neuropathy.. the slow dying of tissue starting in the legs or hands, (diabetes pre-curser) .. for that kind of pain there are pills to cover, but real help comes from food or electro magnetic treatments that unblock energy levels in nano seconds and in subtle levels of charging or discharging the fluids within. we are electrical body's of water. stimulating that body of water is like opening a damm that pervents energy to flow accross a dam that is holding back the free flow of fluids. swollen body parts are just one such simptom that points in the direction of : THE body needs change. ask me more about it by pm.

....Joint pain on the other hand can be eliminated with http://www.getprolo.com as suggested by the former surgeon general Dr E Koop.. read what he said many years ago. (the videos shown there are exagurated.. the treatment does not hurt.. Regular medical doctors know nothing about it.. in the eastern seaboard there is a great DO in CT worth visiting. Ask me by pm.

Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

Just read an interesting article that suggests a fibromyalgia is linked to exposure to sulphites... The Sulphite Connection: Top 10 symptoms to identify if sulphites ... thesulphiteconnection.blogspot.com/.../top-10-symptoms-to-identify-... - Cached

To quote the owner of the site...who spent 2 decades looking for an answer to healing Fibromyalgia... "I tried just about everything and while most things made some change it wasn't until I accidentally discovered that there are sulphites hidden and undeclared in most of our foods that I really noticed permanent change. It happened over night, one day I had Fibromyalgia the next it was gone. That was over a year ago and today I am still symptom free and my immune system has improved, I've lost over 20kg, my energy levels have exploded and I feel and look the most fittest and healthiest of my entire life..."

Personally I have read that fibromyalgia is a relatively recently diagnosed condition... & have often wondered if there was a connection between sulphur/sulphite & salicylate sensitivity & possible conditions like it...

The really scarey thing is that I have also heard that Big Pharma often discovers (sometimes deliberately & sometimes accidentally) medicines/treatments for something that does not yet exist!! They then set about "manufacturing" the relevant disease/virus/condition etc so there is a market for the various products associated with relief of same??!! Of course like with cancer treatments, they are careful not to publish a cure as such, so they can guarantee themselves an ongoing market?!

This makes sense in the fairly recent overuse of sulphites in processed foods & the (cross)breeding of fruit & vegs to be even sweeter & higher in salicylates (reactions to both of which seem to be similar, if not related) & the growing increase in fibromyalgia sufferers??!!Also not forgetting the long fought battle by Erin Brockovich for the ban of and Endosulfan (sulphites) pesticide...http://www.news.com.au/feature.....frflp0-1226075604359

I agree that one size definitely does not fit all, however some of us do seem to react more to sulphites/sulphur/salicylates...etc If this weren't the case, then surely those with fibromyalgia (which, from what I have read, is a still only relatively recently diagnosed disease?) would be healed already with BTD/GTD/Swami alone...

but for what to eat ... for that we have BTD ... and all the rest is history..

Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

If BTD alone could fix it, surely no one would have it anymore? I still think there could be a sulphite connection

If only it were all that simple. I've been on BTD a few years, SWAMI about 2 years, and I don't consume foods with added sulphites. I still have fibromyalgia.

I long ago (pre-BTD) realized that this is a multi-layer problem and it will take multiple things to fix it. I think SWAMI pretty much identified all the food triggers. Getting enough magnesium is another biggie. I'm doing well on added B vitamins. There might be some other nutrients that I haven't identified that should be supplemented, though I think I've been pretty thorough in my nutritional research. I don't know what effects non-organic foods and grain-fed meats may be having on my recovery, as the "top quality" foods are still beyond my budget.

I suspect heavy metal toxicity (specifically mercury from those stupid dental fillings) are another big factor. I asked my dr for a Lyme Disease test- she thinks the results are "negative" but I'm not 100% convinced that it's been completely ruled out. And let's not forget stress. I've been under an awful lot of that lately.

If only it were all that simple....I don't consume foods with added sulphites. I still have fibromyalgia.

There might be some other nutrients that I haven't identified that should be supplemented, though I think I've been pretty thorough in my nutritional research. I don't know what effects non-organic foods and grain-fed meats may be having on my recovery, as the "top quality" foods are still beyond my budget.

I suspect heavy metal toxicity (specifically mercury from those stupid dental fillings) are another big factor. I asked my dr for a Lyme Disease test- she thinks the results are "negative" but I'm not 100% convinced that it's been completely ruled out. And let's not forget stress. I've been under an awful lot of that lately.

Sorry I wasn't meaning to over simplify things regarding fibromyalgia!! Lyme Disease even if the test was apparently negative could be a factor & the effect of dental fillings too!! I am wondering re the not consuming food with added sulphites... That's the thing - sometimes they are not listed (especially in bottled waters)

I suspect also being a nonnie, the grain fed meat may be a part of the effect too Seeing as you raised the question - imo the non organic meat & (mostly likely GMO'd) grains they are fed, definitely could be affecting your system just as much as if you had eaten them yourself I know as a nonnie I don't do as well on meat/poultry if they are fed the wrong feed & I can really react to soy fed turkey...

I respect that you have to budget carefully, but I found when I used to economise & get supermarket mince, it wouldn't fill us as much & the effect of the grain feed caused carbohydrate cravings on top!! Interestingly we also got fewer number of meals out of the *on special* kg/2lb meat?! Not only is the budget mince pumped with water (& I suspect sugared water ) which cooks off leaving less meat, it is packed on corn trays I am feeding a man & he finds the equivalent amount of grass fed mince is way more satiating...Food for thought...

Having been relatively symptom free (even when traveling) for ages now, I am still curious re my Easter weekend reactions... I posted in the coconut sugar & the cornstarch thread & apologise for raising things again, but still wondering...

I was given some organic dark raw chocolate sweetened with coconut sugar, which I have never had before... I've had agave before & even though I have no probs eating heaps of (regularly sweetened non-organic) 70% dark choc all the time, I seemed to react to this chocolate?!

As commented on above, I am incredibly allergic to foods treated with or containing *added* sulphites & sulphur dioxide... So, I am wondering how coconut sugar might be treated/processed?

The only other thing I did over Easter (that I don't normally do) was make my husband some raisin bread, with tapioca starch (as also mentioned elsewhere) I maybe ate equivalent of 2 slices in total, over 3 days (but not the bits with raisins) so could have been this which caused my problems, or a combination of that & the choc?

Over the long weekend I had a series of dreams I would wake from in an anxious state & progressively got more lumpy/cystic skin breakouts on my cheeks/jaw & an extremely painful lower back... As I am really careful to avoid things that affect me, this old back injury has been problem free for well over a year, but it became extremely painful when moving & even tender & inflamed to touch... I also developed a pronounced asthmatic type cough, which has cleared up now... The dreams have stopped, my skin is also clearing up, but the back is still only just coming good...

fibromyalgia is also concerned and mentioned as being one of a parasite invasion mentioned here ...: http://www.klinghardtacademy.org and I also observed a lot of my clientsthat those often were triggered by *body invadors*....... if once understood how true principles are working here..... ...........

Infared saunas are beyond my budget as well. Would a regular sauna be helpful at all? I contacted the local JCC about membership (that may or may not be affordable, depending on how much they're willing to work with me) and they have a regular sauna, but I don't think it's an infared one- at least that's not what the website implies.

Infared saunas are beyond my budget as well. Would a regular sauna be helpful at all? I contacted the local JCC about membership (that may or may not be affordable, depending on how much they're willing to work with me) and they have a regular sauna, but I don't think it's an infared one- at least that's not what the website implies.

Just so you know....I have an infared sauna and it did nothing for my fibro at all. This is sucha complicated subject with so many theories and hypothesis's. What helps some people doesn't help all. And much of the "help" can be placebo. Much of what is being called fibro isn't. I believe fibro is so multi dimensional...some kind of toxin/ trauma to the mind/body/spirit, but by the same token, many people have these trauma experiences and it doesn't wind up stuck in their bodies. And these repeated "flare upS" are so similar to my belief about Lyme disease. I'vehad Lyme twice and wound up with fibro right after my first tick bite. Not sure you can sweatout a stealth bacteria. I think what balances the body's energy is what helps to heal the body.Just my personal opinion. I've spent decades trying everything that exists to deal with fibro.Sometimes I'm fine for weeks at a time, and suddenly out of nowhere...achy all over again.

"The happiest people don't have the best of everything.....they know how to make the best of everything!"

Getting enough magnesium is another biggie. I'm doing well on added B vitamins. There might be some other nutrients that I haven't identified that should be supplemented, though I think I've been pretty thorough in my nutritional research. I don't know what effects non-organic foods and grain-fed meats may be having on my recovery, as the "top quality" foods are still beyond my budget.

I read an interesting post from AKArtlover this morning about the connection between Vitamin D and Magnesium.http://www.dadamo.com/cgi-bin/Blah/Blah.pl?b-pres/m-1287528055/s-175/"Basically Vitamin D is a hormone with a feedback mechanism to let you know if you have enough calcium. Because we are so calcified with supplements and fortified foods, our Vitamin D levels in general are low. This has been interpreted as a deficiency and not as a reaction to calcium. Also Vitamin D requires magnesium to transform it from the storage form to the active form. So when you take Vitamin D in high doses you overuse your magnesium and you hold on to more calcium which also knocks out your magnesium. People who are already magnesium deficient can get hit very hard. The 20% of people who can metabolize Vitamin D without ill effects do well on it. To determine which you are is difficult. So, what you do is monitor you 25-OH Vitamin D levels, work up to about 800mg of magnesium and slowly build up your Vitamin D using 1,000-2,000 IU daily."

Normal day, let me be aware of the treasure you are.Let me not pass you by in quest of some rare and perfect tomorrow.~Mary Jean Irion

I was taking 4,000 iu of D3 orally for well over a year when I had a blood test of 33- clearly that wasn't enough D for me personally. If I only took 2,000 a day I'd surely be deficient again.

I found the quote interesting, not because of the amount of vitamin D they suggested, but because they are stating ~ Vitamin D requires Mag. and if you are low in Mag. this can further deplete the mineral. I don't exactly know the effect of a magnesium deficiency on fibro flare-ups, but have a feeling that it could tip the scales.

Normal day, let me be aware of the treasure you are.Let me not pass you by in quest of some rare and perfect tomorrow.~Mary Jean Irion

I found the quote interesting, not because of the amount of vitamin D they suggested, but because they are stating ~ Vitamin D requires Mag. and if you are low in Mag. this can further deplete the mineral. I don't exactly know the effect of a magnesium deficiency on fibro flare-ups, but have a feeling that it could tip the scales.