A Woman's Journey With Rare Disease

REBLOG: When Delivery Is Not A Luxury

I am extremely fortunate in that I have lived with friends for several years & when I’ve been sick or not feeling well they’ve always been the first to pitch in to help.

This includes riding my ass if my energy makes me feel like I don’t want to eat.

Because of my surgeries, I’ve often had massive fluxes in my appetites.

There were times especially when I was still working that I’d skip a meal or so because I wasn’t hungry & I was so engrossed in my work I’d lose track of time. I often still to this day still have times where I don’t get a physical hunger response on a daily basis like most people. It’s gotten better than it was but there were days, especially after a surgery where I just wouldn’t feel hungry..ever.

I’m lucky that my friend & caregiver makes it a priority to have healthy meals on stockpile quite often & that she has a knack for it.

I’m not a picky eater, but there are things I can’t eat or consciously avoid as a personal choice (soy is one because it was thought that phytoestrogens increase hormone levels & in my disease they think that keeping hormone levels, especially estrogen low may help some. It’s not hard & fast or proven. I just have also noticed I feel better when I don’t eat those foods.) For me, it’s better to not take the risk.

But I could very well be in a different position if I was alone.

[I also have friends too that have offered to help or cook meals if I needed & that offer is always appreciated sincerely even if I never take them up on it.]

If I was living alone, I’d have to rely on a service like GrubHub or something else more often because at this level (especially if I didn’t have strong support) because I just don’t have enough spare energy to cook once sometimes, much less 3 meals a day.

This is especially true on days I have pulmonary rehab.

This is a reality for some people for sure & an issue that often gets overlooked.

Sometimes people do have to rely on it somewhat because of GI issues prior to or after transplant that require them to eat smaller meals more often or as they feel up to it, which may not always coincide to orthodox times.

That’s why other alternative sources like Esme mentions are important to know.

Even other services like Hello Fresh, Blue Apron, Plated or similar services might help out occasionally but can get expensive for many. They also still take energy to prepare & may not always cater to those on special diets.

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One thought on “REBLOG: When Delivery Is Not A Luxury”

I have someone cook for us. She make 5 meals servings for 4, every 2 weeks. That’s 10 meals for the 2 of us. Often it’s just me eating them. I have special food needs, I can’t just order out. We pay her a fee plus groceries. She even shops. It some to about $11-$14 per serving. And the servings are big. It has helped so much. We normally cook once or twice a week, that’s all. Well, hubby cooks, I can’t. It may seem costly, but if I were eating out it would be comparable, and it’s tailored to my taste and diet. I’m lucky I’m able to do this. People don’t understand how difficult it can be. And I can’t drink meal supplements.
Thanks for the post…and the reblog.