Chogrin's Syndrome

My sister is critically ill with complications from vascular disease. Now she is suffering from Chogrin's syndrome, leaving her in excruciating pain and unable to move on her own. I can't seem to find any information on this malady - she is unable to fill me in and her husband can't really tell me much, either. Apparently, she was diagnosed with it several years ago, had it under control with medicine, and since she discontinued the medicine during her hospital stays with the vascular disease, it has "attacked" again. Would appreciate any info someone might have...thanks.