This past May, the Foundation launched a brand new website in accordance with its organizational rebranding efforts. The site now serves as the main hub for up-to-date information on medical insights, patient tools, community events, research opportunities, useful videos, and much more. Special thanks to web developer extraordinaire George Petridis for volunteering countless hours to make this project a reality. Check it out today!

Madame Gail Ouellette, president and C.E.O. of Regroupement québécois des maladies orphelines (R.Q.M.O.), the Quebec rare illness network, was recently honoured at Université du Québec à Montréal's fifteenth Alumni Recognition Gala for her exceptional personal and scientific involvement in the world of rare illnesses, and her career that took her from the world of the laboratory to the world of patient care. Read more.

In lieu of flowers, the family of Mr. Silvio Galli requested that donations be made to the Foundation in his memory. We offer our most heartfelt condolences to the Galli Family and thank them for designating the Foundation as the recipient of their friends’ and family’s generosity.

Be sure to “like” us on Facebook for the most recent news and upcoming activities from the Loeys-Dietz community! And check in every Monday for our popular “LDS Monday” feature: start your week off right with a Loeys-Dietz fact. Click here to visit our page: facebook.com/loeysdietzcanada.

Are you putting on a fundraiser? Have you participated in an education and awareness activity? Is there something happening in the Loeys-Dietz community? We want to share it with the world! Send the details of the event or activity to info@loeysdietzcanada.org to have it featured on our Facebook page and in our upcoming newsletters!

Following the mailing out of our past communications, many of you indicated that apostrophes and other punctuation were missing. We are currently working on resolving this issue and thank you for your patience.