I have been taking oxybutynin for over a year. In the last 6 months, I have had severe dry mouth.?

... I was diagnosed as having xerostomia. I haven't been able to eat solid food since last Dec. I have an appointment to see a rheumatologist in July. I have sores and blisters in my mouth and on my tongue. My teeth are also decaying. Has anyone else had these side effects while on this med? Have you felt better after stopping the med? Thank you!

I tried Biotene toothpaste and mouthwash, and Listerine zero, and none of them worked.

LI

lizzietishb9 Jun 2015

I have been on Oxybutynin for months now. I had no idea that these side effects even existed! My doctor just couldn't put a finger on it. Meanwhile, my mouth and tongue felt as though they were on fire! Here I am, four months later, and I can only eat soft foods. Also, as kaismama mentioned, almost all of my back teeth had to be removed! Here I was thinking that it was some sort of behavior of mine was causing it to happen. So now that I know I am not crazy, I can attribute this extremely painful side effect to Oxybutynin. As to my trying "dry mouth" OTC products, A new line of toothpaste and mouth rinse are on the markent for "dry mouth". It's made by ACT. They also make mouth rinses for "normal" mouths. The toothpaste and mouth rinse are mild on the mouth and don't cause too much pain. Now that I am off of Oxybutynin, here's to hoping that the pain will decrease. I have also used Biotene toothpaste, but I like ACT better.

I also like the Biotene spray moisturizer for the mouth it just doesn't last long enough. Kaismama! I do hope that this helps at least a little bit. My doc thought I was becoming a hypochondriac. Thank you for your post!

KA

Katzoo10 Jun 2015

PLEASE talk to your doctor about going off the oxybutynin. My mouth was back to normal the next day. And please let me know how you feel!

God bless!

KA

Katzoo10 Jun 2015

Lizzietishb

I'm sorry! I just re-read your post and saw where you are already off the oxy. Please let me know how you're doing!

You could train yourself to drink all throughout the day. It may help. I use biotene and always have water with me wherever I go. I frequently sip or drink larger amounts in order to control my thirst, for good health, and to keep my mouth from drying out. My teeth and gums are fine. I take multiple medications that dry my mouth out. I carry a Tervel brand water container in my car and a small plastic water bottle for going inside places I won't be for long. The Tervel container is much larger and goes with me to any place I'll be for more than 20 minutes or so. You can also get a sports drink plastic bottle.