"Just a lot of the things regular parents take for granted, we are just loving right now," mother Amber Medina said.

Amber and John Medina are soaking in every moment.

Their daughter's name is Mirabelle. She was born in October, but it was long before that, during the 20th week of pregnancy, when they first learned of her condition.

"She had one kind of iffy ultrasound, and we were referred to a specialist, and they were able to make the diagnosis of the hypoplastic left heart syndrome," Amber Medina said.

It's a rare, congenital heart defect, when parts of the left side of the heart are small and under-developed.

"Whereas normal hearts have a right ventricle that pumps blood to the lungs, left ventricle pumps blood to the body. She was left with a single ventricle that was doing the work of two," said Dr. Nancy Ghanayem of Children's Hospital of Wisconsin.

Ghanayem is on Mirabelle's medical team at Children's Hospital, where Mirabelle had two heart surgeries.

The first was when she was just days old.

"We couldn't diaper her. She had a catheter. We couldn't hold her for, I think it was close to six weeks, we couldn't hold her," Amber Medina said.

All they could do was watch as their only child fought for her life. The hospital became their home.

"People treated her like she was a member of their family. What Mira needed, Mira got. What Mira wanted, Mira got. And that's how it should be," Ghanayem said.

Her case was complicated because the way her body responded, their little girl was kept at Children's Hospital for the first 10 months of her life.

"It's like holding your breath for 10 months, and then you can finally breath a little bit when she gets home," John Medina.

She finally made it home earlier this month, where Mom and Dad are handling medical care.

Mirabelle makes regular visits to Children's Hospital and has at least one more surgery ahead.

Her parents are now hoping to raise awareness for children with congenital heart disease and this weekend, they're paying it forward.

Hillary Clinton's office said "nothing nefarious was at play" when the former secretary of state used her personal email address, rather than one provided by the State Department, during her four years as America's top diplomat.