List of Yasko/nutrigenomics practitioners?

I saw something from Rich in the past year or so where he said those people didn't really fare any better than the ones doing the Simplified Protocol.

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Hi, Caledonia.

My impression is that both the full Yasko treatment program and the simplified protocol have been very helpful to quite a few people with ME/CFS, but so far neither of them have produced very many complete recoveries, as far as I know. I haven't done a quantitative comparison of outcomes from the two approaches. However, I have been in contact over a period of more than five years with several of those in the Yahoo cfs_yasko group who followed the full Yasko program diligently. Many have experienced improvement, but again, not many have completely recovered. As far as I have been able to tell, the same is true of those who have followed the simplified protocol.

I think the main thing that holds people back from complete recovery is well-entrenched infections. Some of the toughest cases are people who have long-standing Lyme disease and coinfections together with ME/CFS. Another category of tough cases consists of those who have severe biotoxin sensitivities together with ME/CFS.

I think we've made a lot of progress over the past few years, but we definitely have more work to do to figure out how to improve this situation to the point that people can really get their lives back.

I've actually seen people in my biomed recover with full yasko, although I didn't use her full program. I used alotta of her stuff but also other methods. I think what dr. Vank says makes sense. Its back to what my doc always says "you can't put all your eggs in one basket" but have to combine a variety of leading treatments. I doubt only using all of one thing, Yasko or whoever is the final answer. My neighbor said this is one reason she wasn't fully welcomed in the Yasko camp, she wanted to combine a few of them and they believed only their way was right. You have to find someome who uses many of the best treatments and knows how to put them together, not easy but I'm sure others exist. But I also agree with Caledonia, that we have to do our own research.

I think we've made a lot of progress over the past few years, but we definitely have more work to do to figure out how to improve this situation to the point that people can really get their lives back.

Best regards,

Rich

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I was going to ask you Rich, are there any nutrigenomic practitioners/physicians that you can personally recommend?

Thats ok, Dr. Vank, I already know how you feel about her and I know she feels the same way about you. She has spoken very highly of you at our bigger biomed meetings. I really don't want to seem like a selfish shrew either. I just want to keep her to a core group as long as possible but also felt I should share her here. I'd just like to keep it between all of us and not to the population at large. she used to come to our biomed meetings every 3 months, then it was every 6 months, and now She can't get the time for yearly meetings and I knew things would change. But my neighbor told me that other Sutter docs are now referring to her (he's primary care doc) so I'm getting more worried. I think you've probably seen what I mean with some of the other super busy docs.

LOL this thread is sort of depressing... I wish we had more company in Methylation Land!

For those of you who have been addressing this, how important do you think it is to have a doctor who is well-versed in CFS? The reason I ask is because I'm in Chicago, so the Heartfixer guy in Ohio and Dr. Anja Usman (autism specialist) are possible options. However, they don't seem to be up on CFS.

I know methylation isn't a one-size-fits-all kind of deal, but it seems like Greenshots' doc, Rich VanK, and Dr. Nathan are the only ones who have experience with both methylation and CFS.

I don't refer to physicians for liability reasons, but in addition to the docs that have already been mentioned on this thread (I think Angela referred to Dr. Chitra Bhakta in Santa Ana, CA), there is also Dr. Karen Vrchota in Winona, Minnesota. These docs don't do the full Yasko program, but they are up to speed on methylation and CFS and they do treat methylation deficit. Dr. Bhakta has compounded her own treatment. I think Dr. Vrchota uses the simplified protocol, or a version of it. Dr. Keith Berndtsen in the Chicago area has been highly spoken of by some, and I think he is aware of the methylation issue. In Indianapolis there is Dr. Dale Guyer, also highly spoken of. I have discussed methylation with him, but I don't know if he treats it. Dr. Derek Enlander in New York City has also compounded his treatment, and he does treat methylation deficit. Dr. Michael Powell in Sacramento, CA, also treats methylation in ME/CFS/

I must emphasize that physicians make up their own minds about how they are going to treat ME/CFS. They are the ones who must accept responsibility for treatment, and they therefore tend to be cautious about adopting new approaches, especially those that are considered to be outside the "standard of care." They have many people looking over their shoulders, including the FDA, the state medical licensing boards, the insurance companies, the malpractice lawyers, and their peers. I have given information to many physicians. Some of them have decided to act on my suggestions, some have developed their own approaches, and some have pretty much ignored what I have suggested.
I think that we have to understand that they operate in a highly controlled system. I appreciate the ones who are willing to try new things, but I also understand why many are not willing.

It seems your fears have come true,i´ve seen in http://www.autismnti.com/makeappointment.html,Dr. April is fully booked for 2013...
I was planning on having an appointment with her,since everyone speaks so highly of her.
Now i finally have the yasko and all the other tests done,and have to find someone to figure this mess out.

Can anyone recommend someone else? i do live outside of the USA,so i would need a phone or skype consultation.

I suggest you call health diagnostics who does the bloodwork. They will recommend a dr. They gave me one....sorry, don't remember his name. He was in NJ and I don't know if he did LD consults but I am sure Health Diagnostic in NJ can and will assist you on this. Good Luck and Happy healing.

It seems your fears have come true,i´ve seen in http://www.autismnti.com/makeappointment.html,Dr. April is fully booked for 2013...
I was planning on having an appointment with her,since everyone speaks so highly of her.
Now i finally have the yasko and all the other tests done,and have to find someone to figure this mess out.

Can anyone recommend someone else? i do live outside of the USA,so i would need a phone or skype consultation.

thanks

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The Yasko forum is a great place to get answers. Also, if you don't already have these, Yasko's free ebook gives very specific advice for your SNPs, and heartfixer is a very consolidated version of her protocol:

This woman is a patient of the Dr.Mullan,and she was told to "seek advice" from Dr.Yasko,because Dr.Mullan is unsure on how to proceed.
So she asks for help in the forum and gets replies of people who im sure are very knowledgeable of the yasko protocol,but aren´t doctors.

In general, this thread reinforces my belief that I need to figure this out on my own as far as possible. Then if I get stuck maybe try a consult with someone. The field is still too new, but it's not like we can wait 15 years until the world catches up.

People, keep the links and ideas coming though, I will check them all out. I'm working on some Youtube videos that will hopefully explain things in clear understandable manner. This will help others, but will also help me to get it clear in my own mind first, so I can present the information.

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Caledonia, did you make any progress on the Youtube videos? I'm trying to get my head around all this, and esp how to start/what to start with given my specific SNPs and HDRI info. I'd love to see any videos you may have put together.

Caledonia, did you make any progress on the Youtube videos? I'm trying to get my head around all this, and esp how to start/what to start with given my specific SNPs and HDRI info. I'd love to see any videos you may have put together.

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Still slowly plugging away. I'll make a post when they're up.

Yasko says to start with First Priority mutations ACAT/SHMT and CBS. Once those are taken care of, then you can get into the Second Priority mutations MTHFR, MTR/MTRR, etc.

Does anyone happen to know of any nutrigenomic practitioners outside of the USA? I've been considering a trip over the pond for consultation on my ME/CFS and many MTHFR mutations etc, but if there is any recommendable in Europe it would make it much easier for an already tired body - As close to Norway as possible..

It doesn't necessarily have to be full Yasko, but more than just the usual MTHFR 677/1298.. I'm homozygous for 1298 and the rarer MTHFR 3 P39P (according to Yasko similar to, but worse than, the 677), as well as some MTR and CBS funness.

And thank you for the words on Mullan. I've been considering her since Yasko isn't taking any new clients at the moment (their complete package thing isn't available at holisticheal). Since she co-authored some articles, including one on gut issues with low bifido spp (which I have), I was initially looking at her as a good second option to Yasko. But then I listened to a few of her telephone conference recordings and didn't feel quite as sure anymore, so these extra tidbits in this thread sort of confirmed my suspicion.

It doesn't necessarily have to be full Yasko, but more than just the usual MTHFR 677/1298.. I'm homozygous for 1298 and the rarer MTHFR 3 P39P (according to Yasko similar to, but worse than, the 677), as well as some MTR and CBS funness.

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Does she have any source regarding P39P? Because I've read everything I could find about it, and there's nothing indicating it causes any problems, much less severe ones. It's also not even a missense mutation, hence it doesn't change the form of the protein it's coding, meaning it's extremely unlikely to cause significant malfunction.

Her CBS interpretations are completely unsupported as well, and actually in contradiction with the existing research.

Does she have any source regarding P39P? Because I've read everything I could find about it, and there's nothing indicating it causes any problems, much less severe ones. It's also not even a missense mutation, hence it doesn't change the form of the protein it's coding, meaning it's extremely unlikely to cause significant malfunction.

Her CBS interpretations are completely unsupported as well, and actually in contradiction with the existing research.

From the supplement suggestions I see MTHFR3 gets much of the same recommendation as C677T, as well as Amy stating in Webisode Methylation & Mutations: Part 4 (Time 4:25): "We have C677T and 3, which I will talk about first. I feel that MTHFR3 is a more significant mutation [than C677T?]. And if you look at the ratio here, a lot fewer individuals with the homozygous mutation." ... "In both cases we want to look at similar supplementation, and focus on the ability to supplement 5-Methyl THF to bypass this mutation."

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So not sure what to believe on the P39P.. SNPedia tells me I should have lean body mass

Interesting what you're writing about CBS.. I restricted most sulfur foods for little over half a year after reading about CBS, with my heterozygous CBS C699T + C19150T + A13637G - and P-Homocystein is back to 6.8 this month from 5.9 in nov 2012, not that it's necessarily because of the sulfur restriction downregulating the CBS..

Well April Ward was a nurse, not an MD, if the methylation and nutrigenomic field is so complex to discourage experienced MDs as somebody here previously said, how is it possible that she obtained such expertise without being an MD or a Phd?? A fact that i find suspicious is this: generally competent and professional doctors rely on their reputation to seek patients, who are usually sent to them by other doctors. They don't use 'websites' to be noticed by people... for sure a Practitioner who is overwhelmed by patients requests wouldn't need to seek patients through a website...

April Ward-Hauge does get patients sent to her by doctors and she is so busy she has not been taking new patients for several months now. I had a consult with her (extensive and detailed) and don't agree with everything she suggests, but she does know a heck of a lot about methylation, gut issues, etc.