Re: Restless Spine

: : : : I am 40 years old and have had Restless Leg Syndrome for years. The first time I experienced it I was a teenager watching a football game on T.V. I got this feeling in my legs that made me want to jump. I just shook them until it was gone. When I became pregnant with my first child I had the nerve racking feeling every night.I would shake my legs half the night and spend the rest of it in a hot bath. My doctor didn't understand so I learned to suffer in silence. So did my sister experienced the thing during her second pregnancy. I experienced the thing during my second pregnancy and beyond, and now the thing has moved to my spine! Yes my spine! Now instead of shaking throughout the night, I toss, I turn, and I rub my fist into my back. I don't have(and never have had) tingling, pain, or itching. It is not an ache. I can only say that the thing is a sensation that I call a raw exposed nerve that is wound up too tight or an electrical live wire type feeling. The sensation cannot be described by any verb I know. I only know it is very uncomfortable and keeps me awake at night.: : : : I would like to know if there is anyone else who has had the thing move into their spine?

: : : My father has had rls in his spine for years, he has not had a decent night sleep in a very long time and I am trying to find something to help him. He has been to many doctors who tell him that: : : it cannot be rls if its not in his legs. But he knows it is. Have you been told this ? do you have any suggestions?

: : : I am 43 years old and I have the exact symptons that you describe. I have had them for 12 years. I am up all hours of the night every night. I have the problem during the day, but being up walking around seems to help. I have spent the entire night reading this message board trying to find out how others get relief. I sympathize with you on this problem. I take a lot of hot baths and have tried many medications. My husband has to give me massages in order for me to get any sleep. I hope we can find somthing to give us relief.

: I am still up every night and can't sleep well in the day either. I have tried the calcium - magnesium, folic acid and b-12. Nothing seems to be working for me. Thank God I don't have a job to go to. All I want to do is screeeeeeeeeeam.

This is to let you know that I have recently had a hysterectomy. I had many problems but the main one seemed to be adenomyosis. Although I still have back pain a drug called Ultram has allowed me to get the badly needed sleep I need. I took it before the surgery with some help, but now I have shown a marked improvement. If you ladies are having any gynocology problems, ask your dr. if adenomyosis could be causing you more pain. I still have problems in my back, the MRI shows degeneration in the 4th and 5th lumbar and I hurt in the tailbone section. I pray to God that the pain will not come back in the severity it was before my surgery.