Weʼre raising £200,000 to Help fund things myas need's for treatment for neuroblastoma and to raise fund's to get the treatment needed to keep her in remission page

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Story

Hi this is our little girl Mya Hopkins she is four years old and has a rare type of cancer called neuroblastoma. Under 100 children a year in the Uk are diagnosed with this type of cancer. The survival rate for girls is higher than boys but the older the child is the chance of survival diminishes.As she is four years old and is already at stage four and high risk we have a

fight to get Mya into remission. She is at stage four and has a tumour between her adrenal gland and kidney ,the cancer is also in her lymph nodes and she has deposits in her bones. she was diagnosed on the 14/07/17,we have been told that she has a 50/50 chance of survival. So far she has had three rounds of intensive chemotherapy, her regime consists of two days of chemotherapy three hours a time for two days then eight days later she will have 27 hours in 1 session then 8 days off back to two days for three hours and then the cycle is repeated .she will then have surgery to remove the tumour and then have stem cell harvest to get rid of cancer cells and promote healthy cells . she will then have radio therapy . So far she has had an infection in her hickman line so they had to remove it. Her treatment was then put on hold for twelve days, but the infection has now cleared enough to have the hickman line put back in so chemotherapy can commence.We are trying to raise funds to take her to America as if we succeed in getting her in to remission we will then need to complete Myas treatment to ensure she stays in remission it will be a clinical trial but it is not NHS funded the cost for this treatment will be £150,000. The consultant is quite confident that he will get her to this stage although there is a risk it may not work which means she will then die. If we are told that remission is not possible then any funds raised will go to a bucket list .she is a very strong little girl who has such a determined character. The good news so far is that the tumour has shrunk so we are heading in the right direction. She is such a happy smiley little princess even when in a great deal of pain,she sometimes struggles to walk so will also need buggies or wheel chairs to be mobile . She has a great deal of discomfort in her stomach which she then has to take strong pain relief usually tramadol and paracetamol and ususally on all sorts of antibiotics and anti fungals. she suffers high temperatures due to type of cancer . On admission to hospital she weighed 33 kilo's, she now currently weighs 18.5 kilo's which is extremely worrying as she needs to keep her weight up to help her fight this dreaded cancer she has had ng tubes in her nose which she has either sicked it out or ripped out as she hates it so constantly trying to get her to eat its extremely hard as she never feels like eating .this horrible cancer has broken our hearts .and destroyed us we are terrified .We need to give our little girl the best chance of survival as life without her would be unbearable.she has lost her hair but she was provided a lovely wig by a charity called the little princess trust which is very similar to her old hair its beautiful. The staff at Bristol children's Hospital are doing all they can to save our little girls life and we are so grateful as without them our little Mya would not be here right now. She deserves to live a happy contented life with her six year old sister Lexi who is severely affected by this . Lexi feels abandoned, scared and is aware Mya is very poorly . It terrifies her every time she visit, it breaks our hearts to watch her be so scared shes a very sensitive little girl . We need our baby girls to get back to how they were we need them to be together again . So this is why im asking for donations to help save our little girls life, we cant imagine Mya leaving us she is everything and more. Cancer is so cruel no child should ever have to go through this . Our whole lifes have been torn apart and im praying that all the treatments work as if she relapses there is a very low survival rate and relapse is a high risk . Thank you for taking the time to read Myas story.

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Updates

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4 months ago

Janie Meaker

4 months ago

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5 months ago

Janie Meaker

5 months ago

We had results from bone marrow it was good news the neuroblastoma has left the bone marrow.she still has tumor and cancer in the body.but it shows treatment is working which is the best news we could have at this stage.we still have a long way to go.she recently had a lump form in her throat if it is a tumor it would mean a secondary cancer .which we would be in big trouble but luck had it the lump is shrinking so more likely a infection so no mri needed yet thank god .

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6 months ago

Janie Meaker

6 months ago

she has just had a bone marrow asperous so tommorow we should find out how treatment has gone so far .fingers crossed .she is such a little fighter we was made aware the infection she had last week was in actual fact sepsis.very common when you have a hickman line but it can be life threatening .im glad i did not get told as i would have been even more scared .and i would like to say thank you to those that have donated so far means alot xx

About the fundraiser

Janie Meaker

Bristol, United Kingdom

please take the time to read myas story as we need help to try to save our daughters life we cant do it without the help of everyone so story is below thank you the page keeps miss printing things we need to raise 150,ooo thank you again