A Woman's Journey With Rare Disease

New Month No Foolin’

My oxygen use is on an upward swing again. Has been the last few days. Today especially. I am hoping it’s just the humidity as it was pretty gross out when I went out for a second this morning…& not the best weather yesterday either.

I reported this to my team though, just in case.

I mainly vegged after exercise & caught up on shows like Game of Thrones the last few days because I was having more pain spikes. I grew tired of just trying to tough through them. I needed to take my mind off of them.

I hadn’t had energy or concentration to watch some of these shows in a very long time but I was sucked right in, so it was the perfect escape.

I also allowed some anger & tears to release over a few frustrating situations at points, but that’s good.

It’s also the start of Camp NaNoWriMo which I’m participating in this year so I can get in on some more writing. I don’t know that I’ll get 50,000 words but I am hoping for 30,000. I seem to do better with a challenge like this rather than trying to just write on a daily basis. I was very pleased with what I did in November as part of that first challenge.

I may do some short stories or a novel, I guess I’ll know when it comes out later this afternoon or evening in some quiet time. This challenge appealed to me because I can set my word count & pick what I want to write, it doesn’t just have to be a 50,000 word novel.

It’s also Blab day with two good friends of mine. Today has to be the best day of the week by default because it’s packed with creativity & for once I feel up for it.

It’s also Friday. I have more energy at this point now than I have all week. I’ll enjoy it while it lasts for however long.

We shall see how the rest of the day fares, but I take what I can get & make the most of what I have now as I usually do attempt to do.

Things always get better in the spring…Hmm, maybe not always in everything — but maybe in some things.