Monday, August 31, 2009

We went today and got hooked up for a 24 hour ambulatory EEG with video. She has had some "spells" that I am assuming are from her holding her breath but better safe than sorry! We have had to re wrap her head 3 times---she keeps bumping her head and knocking the gauze off! Stinker :)

About Me

Hi! Im Avery. I am 3 years old and am a very happy, loving little girl. I love music and t.v. My biggest enjoyment is kisses from daddy. I will raise my head so he can kiss under my chin. He calls it my "sugar bowl". I have a big brother Cole.
I was officially diagnosised with Rett Syndrome on April 7, 2008. For more information visit rettsyndrome.org