Miracles Happen... and David is Proof!!!
David's story is about a Heroic little boy who has managed to inspire the world with his strength, courage, and smile. His journey can remind us all to remain faithful, hopeful, believe, and Smile!
I share our journey openly. It is real, raw, and uncut, and although I share our faith, miracles, and blessing, I also honestly share the ugly truth about what parenting a child with special needs sometimes entails.

Monday, October 22, 2012

Never fails that when I begin to
get tired and/or weary I receive a
random message or call (sometimes from random strangers) from people who want to share with us how my
son, his smile, or our story has impacted their lives or that they care. It always comes as a gentle reminder of what
our journey is about. It is about
pushing forward, overcoming, and allowing our journey to testifying how
faithful our God is and how strong we can be when we choose to fully rely on
him for our strength.

Sometimes it’s as simple as
someone taking a few moments to share a few kind words, that helps me step back
and put everything in perspective. So to
each and everyone one of you who have taken the time to encourage us throughout
this journey just KNOW that you have made a difference.

Take the time to encourage others
whether you know them or not. Life can
be challenging and in the mist of those challenges it is easy for our human
nature to become defeated. Sometimes a
simple reminder, whatever that may be, is all someone might need to muster the
courage necessary to continue on! You
never know what a significant impact those few words of encouragement might
have on somebody's journey… so share them!

For myself, I find that I often get caught up in “the challenges
of life” and quickly become exhausted.I know things eventually always
slow down and I always manage to pull through,
but in the meanwhile I sometimes need to be reminded of what our journey
is about... Love, Courage, Hope, Faith, Grace!

"To the world you might be
one person, but to one person you might be the world"

Sunday, October 21, 2012

Today we participated in the 4th
annual Hope Walk which benefits Hopekids.

A note from Mylee’s mother Sara…

The Legend of the Backward
Princess

Once upon a time, there was a
princess who did everything backward.When she was supposed to be born,
she almost died. But she lived, and everyone was happy.

But when she was supposed to
swallow her food down, she threw it up, instead.

When she was supposed to walk,
her legs wouldn't work right. And when she was supposed to sing, as princesses
do, she struggled to make words.

The King and Queen and the whole
kingdom loved their Backward Princess very much, but sometimes they just didn’t
know what to do for her.

They visited royal doctors. They
tried magic spells and potions and sometimes, the Backward Princess would
surprise them.

With her sunshine smiles, her
wiggles & giggles, her dances with her mommy, and the times she could say,
“I love you, daddy” she would fill the kingdom with hope.

A new princess joined the family,
and she zoomed forward and loved her princess sister.

Together, the royal family filled
the kingdom with their brave journeys, their love & smiles, and really
awesome facebook pix.

The Queen herself went on a quest
to cure the Backward Princess. She
braved the dark forest of doubt and fear, she battled the deadly swamp monsters
of health care, she learned from the sages, and through it all the King
protected them when they needed it, and sent the Queen a margarita when she
needed that.

But nothing they tried could
change the destiny of the Backward Princess and before you knew it, it was her
time to pass on. But she did that
backwards, too.

She didn’t die from a magic spell
or a dragon battle or a poisoned charm in fact, she hardly died at all.

Her backward story–and don’t
forget those facebook posts–touched life after life after life . . . she just
kept living in the hearts of the King and the Queen and her princess sister,
and then her story grew beyond that, and she was celebrated all throughout the
kingdom . . .

The Backward Princess taught many
people how to live and love and embrace their lives and grow forward and her spirit will soar free,
forever.

In Memory of Mylee, please donate
to this wonderful organization. We
continue to give praise, to fight hard, and to have 24:07:HOPE... Give to
Hopekids Arizona!! ♥ http://www.hopekids.org/ .

Tuesday, October 16, 2012

I'm a real person and there are times throughout this
journey that I get exhausted, overwhelmed, and even feel defeated. Even when my
human nature causes me to stumble or fall I know I will ALWAYS get back up!!! I
was born a fighter and I will die a fighter and when I can't find the fight
within myself I look at my beautiful little man David who is a perfect example of
what courage in facing the world is all about. God is amazing and faithful
& when I can't do it myself God always remind me that I can do all things
through Christ that strengthens me!

Wednesday, October 10, 2012

I have a dear friend who has two children with MPS IV. She
is a single mom who has sacrificed her life to care for her children. Life has
not been easy for her or her children. Yet, she still manages to embrace li

fe and move forward for her kids. Right now she has been
traveling once a week, with two children in wheel chairs to get her kids the
medical treatment they need. As a result, she has had to quit her job to focus
solely on them and their care. This has taken a toll on her and her family
financially, physically, and emotionally.

This morning she called me crying because she needs new
tires and brakes for her wheelchair accessible van that she uses to transport
her children. She is barley making ends meet and was overwhelmed with the
thought of another expense that she does not have the funds for. I have been
there and understand how hard it is to make sacrifices for your child’s needs
at the cost of you financially stability. For most of us we have the luxury of
taking care of our needs as they arise and I would really love to bless this
mother and show her that God and people who care will help her provide for her
beautiful children even if she personally doesn’t have the means to do so.

I have made a personal fundraising goal of $500.00 which
would allow her to at least take care of the immediate issues with her vehicle.
If everyone gave just a small amount we could make this happen very easily.
Please help me show this family how truly special and supported they are!

Monday, October 8, 2012

Last night when David got tired he said "come on" and
we made our way to his room. We cuddled for a second but I quickly left the
room so he could get used to bonding with Cadance. To our surprise he stayed in
bed and didn't even get out once. So then mommy went stalker and watched him for hours from monitors in my room ;)

Day two and he didn't even get out of bed to look for me...
I think my feelings are a little hurt! LOL

Saturday, October 6, 2012

9:44pm - Uggg... It is bed time ;( David and Cadance are in bed and mommy is
going to watch them on surveillance for a few hours before I try and sleep all
ALONE in my King size bed. I think the
hardest part will be keeping David in his own bed since he keeps trying to
climb out to find me. To tell you the
truth it might be even harder keeping me from crawling into bed with him. Gosh I love him my little man so much, but
this separation (as hard as it is) is long over due!!!!

10:32pm - So I broke... After watching David sit at the gate
and pathetically look for me, I crawled into bed with him. Right when I laid
down with him and he grabbed my arms and wrapped them around him. I laid there
and cried until he fell asleep. I AM A BIG GIRL... I CAN DO THIS! I just have
to keep reminding myself that this is just another challenge to get us to the
amazing life we have been waiting for... the life God has for us.

5:06am - We did it!!!! We both made it through the nights in
our own beds. I was woken this morning to David sneaking out of bed and setting
off the alarm ;) Well we made it through the night and I even woke up at 5am
for a practice run.

Last night we let David and Cadance just get acquainted to one another. David was able to sleep with me one last night. Today the two of them practiced lying
in bed together. We watch them through surveillance in another room. Their bond
is priceless! I cannot lie mommy is a little jealous. I know that tonight will
be a very long and emotional night for me.

Last night we had the opportunity to finally meet our new Service Dog ~ Her name is Cadance and she is beautiful! David and her had an immediate connection and they have already developed a couple of precious games with each other! Boot camp is and will be intense and will keep me very busy for the next few weeks, but it is a very small price to pay considering that this amazing gift is a Dream Come True for David and I!!!

Thursday, October 4, 2012

I just got of the phone with Brian the owner of Arizona Goldens, I still don’t know what dog we are getting
because it is a surprise, but we are officially beginning boot camp tomorrow evening.
This means that for the first time in 15
years David will be able to sleep safely in his own bed.

Brian said they recently took our dog to an event for
children with a variety of special needs so that they could expose the dog to
various medical conditions and see how she interacted. He said that the dog immediately showed interested
in particular children, but all of their special needs were very different. After speaking to the parents of the children
the dog took to, he discovered that although the children all suffered from
different disabilities the one characteristic they shared was epilepsy. This
is very comforting news.

I wanted to again than SheKnows for all of the amazing
things they have done for our family. Life
is so very different for us now and Thank You just doesn't seem to be enough!!! I also wanted to thank our church. the River
of Life who took a love offering for
David and I last Sunday. As a result, we
were able to collect enough money to purchase a home surveillance system. Tomorrow morning we are having surveillance
cameras installed throughout our house so that David can be monitored (for his safety)
as we get adjusted to his new found independence.

I am so very excited about this step in our lives. Although, I must admit that letting go of some of the customs
that David and I are so use to is still a little scary. Lately I have been working long hours and it
seems as if the only time David and I get to bond and cuddle is bed time. Him and I both having our independence is
long overdue, but not having an excuse to keep him in my bed is giving mommy a
little separation anxiety.

I guess that means it is time for us to create new customs
and traditions in our NEW LIFE =)