Table of Contents

Cancer Surveillance and Epidemiology in the United States and Puerto Rico, 1973-1977 (ICPSR 8001)

Principal Investigator(s):National Cancer Institute

Summary:

This dataset was produced as part of the Surveillance,
Epidemiology, and End Results (SEER) Program to monitor the incidence
of cancer and cancer survival rates in the United States, thus carrying
out the mandates of the National Cancer Act. The SEER Program had
several objectives: to estimate the annual cancer incidence in the
United States, to examine trends in cancer patient survival, to
identify cancer etiologic factors, and to monitor trends in the
incidence of cancer in selec... (more info)

This dataset was produced as part of the Surveillance,
Epidemiology, and End Results (SEER) Program to monitor the incidence
of cancer and cancer survival rates in the United States, thus carrying
out the mandates of the National Cancer Act. The SEER Program had
several objectives: to estimate the annual cancer incidence in the
United States, to examine trends in cancer patient survival, to
identify cancer etiologic factors, and to monitor trends in the
incidence of cancer in selected geographic areas with respect to
demographic and social characteristics. Data collection began in 1973,
and by 1977 had a population base of 11 geographic areas in the United
States and Puerto Rico. SEER variables include patient demographic
information (age, sex, race, birthplace, marital status, census tract)
and information on cancer, which was gathered from hospitals, clinics,
private laboratories, private practitioners, nursing/convalescent
homes, autopsies, and death certificates. The medical data cover
histologic type, anatomic site, laterality, multiplicity within primary
site at first diagnosis, diagnostic procedures, diagnostic
confirmation, sequence of the tumor, extent of the disease, treatment
of the lesion, and outcome.

Access Notes

These data are freely available.

This study is maintained and distributed by the National Archive of Computerized Data on Aging (NACDA), the aging program within ICPSR. NACDA
is sponsored by the National Institute on Aging (NIA) at the National Institutes of Heath (NIH).

Dataset(s)

Study Description

Citation

National Cancer Institute. CANCER SURVEILLANCE AND EPIDEMIOLOGY IN THE UNITED STATES AND PUERTO RICO, 1973-1977. ICPSR08001-v2. Bethesda, MD: National Cancer Institute [producer], 1979. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1992. http://doi.org/10.3886/ICPSR08001.v2

Universe:
Cancer patients diagnosed each year, and cumulatively, over
the five-year period 1973-1977, in the United States.

Data Types:
clinical data, and administrative records data

Data Collection Notes:

The age at first diagnosis was 0-18 years (N = 5,212),
19-34 years (N = 26,366), 35-54 years (N = 78,428), 55-64 years (N =
88,426), 65-74 years (N = 95,619), 75-84 years (N = 66,327), and 85+
years (N = 20,648).

Methodology

Sample:
The registry, by 1977, encompassed 12 percent of the United
States population and collected data on 100 percent of cancer diagnoses
in 11 SEER locales: six states (Connecticut, Hawaii, Iowa, Louisiana,
New Mexico, Utah), four metropolitan areas (Detroit, Atlanta,
Seattle-Puget Sound, and San Francisco-Oakland), and Puerto Rico.

Extent of Processing: ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of
disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major
statistical software formats as well as standard codebooks to accompany the data. In addition to
these procedures, ICPSR performed the following processing steps for this data collection: