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I love this video!!! My daughter has Usher Syndrome 1. She is 21 years old. Because Usher Syndrome is a low incident population there has not been enough research and attention focused on this genetic condition. We need ELLEN to bring more awareness to this syndrome!!! Please! Please help us share our message of struggle and HOPE with the world!!!!!!

I have two daughters with Usher 1F. While they hear and speak well thanks to bilateral cochlear implants, they are facing losing their vision. This is a wonderful way of highlighting a disease that has not received the attention it should, including a lack of NIH funding for research.

My 29 year old amazing daughter has Ushers Syndrome 1f. On her own, she managed to graduate college with honors and pursue a career, but wants to "see" the world. Help Dorie and others to fight this disease that robs them of so much beauty in the world...both visually and auditory!

Great job Rebecca and all who contributed! My husband has Ushers 2A and we are working with Foundation Fighting Blindness, but we need more awareness and $$$ for research. Thanks to everyone who is helping!

This is an invisible problem. Most have hearing loss very young. Then blind spots, to tunnel vision to blindness. I started wearing hearing aids in 1st grade. (1954) School was not easy. Noticed the blind spots in my mid 30's. Diagnosed with Usher Syndrome age 40, 1988. I am so grateful for the research. ( love my two cochlear implants too) .

Way to go Rebecca -- you are awesome and an inspiration to everyone facing adversity in their life -- the video is incredible and the back-up dancers deserve to shine on stage with Usher at a benefit concert. If we all team together, create world-wide awareness we can End Usher Syndrome. Come on world, let Ellen and Usher know you care!!!

Love the video and am touched by your show of strength, your struggle and the hope you continue to have. ELLEN please help to bring more awareness to this syndrome! Please everyone help spread the information about Usher syndrome which robs people of their hearing and sight! Good luck and keep up the fight! Saying prayers for you!

My amazing 29-year-old cousin has Usher Syndrome 1F. Although Dorie was born profoundly deaf and is now losing her vision, she personifies the words grace and beauty. She is fiercely independent and hopeful that a cure will be found to save her vision. Ellen, please help to increase awareness of Usher Syndrome.

My son was diagnosed 2 months before his 21st Birthday. He turned in this driver's lic. on his 21st Birthday. He is a student at RIT. Usher2a severe hearing loss 23 degrees field of vision. Now 23 yrs. old #findacure4usher <3

My Son has Usher Syndrome type 2C, and this made me cry . My son who is 4 years old now, is born deaf and will be losing his vision. it was hard dealing with deafness, but when I think about losing his vision too, I wish I can do something to help him, I would give him my own eyes to see, and my ears to hear, I wish there would be a cure. wishing and praying is all I got, and together we could make it happen.