Steve Mason's 5 for 50 Marathon Challenge for Duchenne UK

Steve Mason, a great family friend of Connor Crawford,5, (whose parent set up Chasing Connor's Cure) has completed his "5 for 50" Marathon Mission and has raised over £5,000 for Duchenne UK.

For Steve's 50th birthday year he set himself a mission of running five marathons that year!He has not only succeeded in that mission but has also completed two half marathons, and all within an eight month period.

Steve focussed on swimming in his school years, and only made the switch to running when he was 41. He’d experienced the loss of a close colleague from lung cancer, and this motivated him to sign up for a 5k run in aid of Cancer Research. The running bug got hold of him, and he’s combined it with impressive fund-raising efforts ever since. Typically, he raises money for a different medical charity each year, and this has seen him run in the London Marathon three times, as well as the Berlin Marathon and the Kent Coastal Marathon.

Steve is a keen cyclist and also completed the Prudential RideLondon-Surrey 100 as well as joining Duchenne UK on the Duchenne Dash this year.

Like most fundraisers, Steve has to fit his training around his job, in his case as a facilities manager for the Wellcome Trust in central London. Conveniently, this means that Primrose Hill is close to hand for lunchtime training, and he enjoys being an unofficial coach to some of his colleagues.

Now, at the end of his "5 for 50" challenge, Steve wants to plan the next challenge for 2018 to raise more money and awareness for Duchenne UK.

Steve said: ”It’s a cause very close to my heart, I will do what I can do.”

Matt Crawford, Connors Dad, said: "Steve has raised over £5000 this year for Duchenne research, which is quite simply amazing, not only that but he is continuously spreading awareness. Well done Steve – you are a true superstar and Happy Birthday for the 16th October!!."

Summit Therapeutics plc have announced positive 24-week interim data from PhaseOut DMD, their Phase 2 clinical trial of the utrophin modulator ezutromid. The data showed a significant reduction in muscle damage and an increase in utrophin in muscle biopsies.

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Summit Therapeutics plc have announced positive 24-week interim data from PhaseOut DMD, their Phase 2 clinical trial of the utrophin modulator ezutromid. The data showed a significant reduction in muscle damage and an increase in utrophin in muscle biopsies.

Yesterday, the new Care Considerations for Duchenne were published. We strongly encourage all parents, caregivers and patients to read these updates to the standards of care to ensure that everyone living with Duchenne has access to the best possible care

We’re pleased to share the latest coverage of Hercules. The launch of the project, with our seven industry partners, has received coverage in 10 publications. HERCULES is collaboration between Duchenne UK, and pharmaceutical companies to increase the chances of patients with DMD of accessing innovative treatments.

Duchenne UK is delighted to have been chosen by Marshall Wace as their charity of the year and to be awarded a donation of $100,000. The donation from Marshall Wace will fund 10 boys with Duchenne on our Tamoxifen Trial.

The DMD-Hub was created by Duchenne UK and leading neuromuscular clinicians. The DMD-Hub is addressing the lack of capacity in the UK for clinical trials in DMD. During the first year of operation the DMD Hub has successfully achieved, even surpassed, the immediate priorities identified through the Newcastle Plan.

We would like to congratulate the Joining Jack team for their recent victory! Joining Jack took a team to the Dubai 7's international rugby competition, and they came back champions! Alex Johnson, founder of Joining Jack and Jacks Mum, tells us more about Joining Jack's victory at the Dubai 7s.

It has been a busy year at Duchenne UK. Our mission is to fund and accelerate treatments and find a cure for Duchenne muscular dystrophy. We look at where we can add value to the drug development pathway, and how we can help to accelerate research that will benefit the whole community.

Today, December 14th, marks the publication of Janet Hoskin's book: 'A Guide to Duchenne Muscular Dystrophy: Information and Advice for Teachers and Parents'. We are offering free copies to families affected by DMD, please contact us to request a copy.

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Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.

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