Why I Felt Like an Outsider at a School Meeting for My Son With Autism

Our son, TJ, is 15 and has autism.We are used to our parent/teacher conference days by now. We’ve already met his teachers at open house, and at a team meeting organized by his special educator before that.

This is all routine for us and has been for a while.And we’re in such close contact with TJ’s educational team that at these meetings, there are no surprises.

What was new for us last night, however, was the adult services/transitional informational meeting we were invited to, and attended, after our conferences with TJ’s teachers.

TJ is a sophomore in high school, so we were grateful for the opportunity to learn about what possible services and programs could be in TJ’s future.

There were a handful of parents there;in fact, there were more presenters than families.At first, I thought this was great — there must be so many opportunities for kids like TJ upon high school graduation!

Then, one by one, the presenters spoke about the organizations they represent.Every program sounded wonderful — employment and educational opportunities with organizations that think of the whole student (academically, socially and including life skills, too)! How great!

As I sat there and listened, however, I began to feel that slow creep of fear.There is a lot to know about these programs.And this part of his life always felt far away. I don’t know if we’re ready.And a lot of the employment they’re speaking of are jobs in supermarkets, or restaurants, or front desk jobs at gyms… TJ loves animals and really knows so much about them.Where would he fit in?Would he fit in at all?Do we live in a terrible area for him, with no place to fit his interests, and do we have to think about moving?

All of these thoughts came flooding to me at once.And then, like a swift kick to the head, came another thought:

I don’t think TJ will have the typical “apply to college and wait for acceptance letters and celebrate with your family when you make your choice” experience.

This hurt.A lot.And I don’t even know why.

I learned a long time ago that TJ doesn’t have most of the experiences typical kids have. I’ve mourned these losses and accepted them, and I’ve learned to treasure every success he has had.

I thought I could handle anything.I thought I was prepared for whatever came next.

Turns out I’m not as prepared as I thought.

And then I thought of my friends, waiting in line at the gym (where parent/teacher conferences take place) to talk to their kids’ teachers.

And I suddenly felt left out, different and alone.

I know, logically, that I’m not alone.Sean, my amazing husband, was sitting right beside me.And if he was feeling any of these same feelings, he wasn’t giving it away at all.

I also know my experiences at those conferences in the gym are similar to that of my friends’ experiences… right?Aren’t they?Or are there discussions parents of typical kids have that we weren’t having?

And I felt like an outsider in that crowded classroom.All by myself in that busy, bustling building.

Do we get to make college plans like other parents?I know that if we do, it certainly won’t look the same.We will have to work with an outside agency, whose help we need to plan separate living arrangements, and socialization, and learning how to share a kitchen, and learning how to take a bus around town.

And that’s just the tip of the iceberg.

All this time, I suppose I thought that TJ would go to college, discover his passion and magically translate that into a job.It was always my dream for him.But what if my dream and his dream don’t match?They most likely won’t.He probably won’t want to leave home, much less leave the state, and I dreamed he could go to college anywhere he wanted.

He probably will always want to stay close to home.

I feel like I’m on the edge of a cliff, looking over and not knowing what comes next.

And I suppose in some way, I am.The future is unknown.The things we have to consider for TJ’s future are much more detailed than that of your typical kid.The planning has a lot of hands involved.There are a lot of new things for me to learn as this next big step approaches.

I’ve felt this way before — just before TJ started kindergarten.

So today, even though it hurts, and I feel like an outsider compared to other parents of sophomores, I know that soon, all those tasks I have to perform for my boy will feel routine.As I learn more and more about our path, and the process we will have to go through, I will feel more secure and less alone.

So forward I go, one foot in front of the other, comforted in the fact that although we are on the edge of some new experiences, we will soon hit our stride, and do just what needs to be done to have TJ just where he needs to be.

Lauren Swick Jordan is a stay-at-home mom to her amazing boys, TJ and Peter, and wife to Sean (“The Dreamboat”). Since TJ was diagnosed with autism at age 2, Lauren’s mission has been to spread autism acceptance wherever she goes. She blogs at http://lauren-idonthaveajob.blogspot.com. She and her family live in northern Vermont.