Subscribe to this blog

Follow by Email

Search This Blog

The Lunch Bag

The Lodger started preschool in the last few weeks. We found a preschool that have accepted him without a preschool assistant, a battle we continue to fight, trident in hand we fight on.Anyway all he needed was a thermos lunch bag. So simple and yet these were the thoughts going through my head a few days before he set off.

I discuss with the Lodger where we should shop for his lunch bag and because it's a Wednesday and because it's just after lunch he's in a YES mood so my decisions are all agreeable. This is a good day.

We arrive in the shop and I survey the options. He loves Frozen but I don't so I veto that. He understands. Daddies know best. He loves monsters too but it's all monsters crossed with lunches, so monsters eating and I'm not sure about how Pradar-Willi friendly that is. Then there's the happy strawberry bag with the lovely strawberry zips but I wonder if I buy that one will his teachers believe how serious PWS is if we're so casual about this type of lunch bag. Will they think strawberries are ok but other foods aren't? I'm keen to keep the lines clear.

I know this is ridiculous but Prader-willi Syndrome is ridiculous. It does things to you. You see the world in a different light. You get angry at people eating freely. Like just eating. Without caring. Just eating food and not checking the portion size or the sugar content or using the app to see how many calories are left for the rest of the day. Its preposterous! How dare they enjoy eating!

Anyway rant over we move on and we've manage to whittle it down to two. It's Minions verses Fireman Sam. The Lodger likes Minions but I'm not sure if it's just because he loves yellow (he also loves the Simpsons) and bananas. And I'm talking REAL love. We went through a phase of giving him a banana for his snack after swimming on a Wednesday morning until every Wednesday morning he'd wake up saying nanana nanana. And let's face it swimming is enough fun without wishing it all away waiting for a banana.

Anyway my parental knowledge tells me everyone will have Minions and firemen are manlier anyway. And that's most important to a three year old.

The Lunch Bag

As I've said its a YES sort if day so The Lodger agrees with me and he walks all by himself (because he can) carrying his new Fireman Sam bag up to the checkout. He's delighted with himself. It's a good day.It's definitely worth enjoying the good days.

Comments

Post a Comment

Popular posts from this blog

Firstly I can't say I am in any way qualified to discuss this subject. There are no letters before or in fact after my name. I went to college but didn't learn anything about stress, anxiety or Prader Willi Syndrome. And I don't get paid large quantities of money to discuss these topics. But what I do have are a very particular set of skills, skills I have acquired over a 4 year period. Skills that make me a nightmare for people like you. The last part is factually not correct but if it's good enough for Liam Neeson it's good enough for me.

My skills are a little different and totally self taught through nothing other that necessity. The necessity to deal with the wonderful symptom of anxiety in a 4 year old with Prader Willi Syndrome. Again I'm only 4 years and 7 months into my journey of involvement with Prader Willi Syndrome so my experiences and thoughts are just mine and not the silver bullet of PWS. If it was, maybe more people would read this blog. The Lodg…

Sometimes you enjoy spending time with your child. I'd even go as far as saying most of the time it's enjoyable. But then there are those other times... It's 5am. I know because I've checked the phone, undetected, hopefully, as The Silent Shuffle Monster makes his way through the darkness. The Lodger is awake. I always check the time in trying to understand this next crazy symptom of Prader-Willi Syndrome. The dreaded early waking. I not sure on the specific reasons or causes for this. Possibly hunger or a low blood sugar level or possibly anxiety relating to the 'Will they remember to give me breakfast?' A consistent worry in the world of PWS.

Ive captured this moment before, the waking and slow approach, It happens like this. The Lodger wakes, reaches out turns off his sleep apnoea machine and carefully removes his mask. He then slips carefully from the bed making sure not to wake Walter and pulling the covers back up on him. Important not to wake wake Walter. Th…

It's been quiet in the world of The Lodger of late and by quiet I mean so freaking busy there's no time to write about the trials and tribulations of Prader-Willi Syndrome. I guess it's also easier to write when times are good and when there's time for celebration but I guess if we're to be honest about Prader-Willi Syndrome recently there’s been a few more bad days. If it's not another disappointing hospital trip where your answers still can't be answered because let's face it they don't know all the answers, it's another hoop to jump through trying to get The Lodger better services in pre school and trying to plan for primary school next year. And then there's The Lodgers ongoing development and attempts to understand the world around him. The Lodger is four and the behavioural challenges of PWS are showing through. Possibly due to lack of understanding and still some difficulty with communication the Lodger is testing his surroundings la…