A Public Benefit, Non-Profit Organization

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"The site is essential for a source for the general public, whenever one encounters the diagnosis of Kennedy's Disease and has no idea what that might be. There is simply no other source as easily available to the public."

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The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease

2017 Research

November 15, 2017 - MDA Announces SBMA Research Grant. For more information, please check out the Living with Kennedy's Disease blog. To view th blog, click here.

October 26, 2017 - Thanks to a new, $151,000 grant from the National Institutes of Health, Dr. Heather Montie and her team will spend the next two years creating a preclinical research model using zebrafish, which will hopefully help drive research in SBMA and eventually, help lead to a therapy for patients. For more information, click here.

September 3, 2017 - New Treatment for SBMA approved in Japan. Check out the Living with Kennedy's Disease blog for comments on the study as well as a link to the original article which is written in Japanese. To view the blog, click here.

May 26, 2017 - The study, Identification of Neuron Selective Androgen Receptor Inhibitors was just published by the World Journal of Biological Chemistry this week. Check out the Living with Kennedy's Disease blog for comments on the study as well as links to the news article and published results. To view the blog, click here.

May 1, 2016 - Correlation of insulin resistance and motor function in spinal and bulbar muscular atrophy. To view the article, click here.

January 4, 2017 - The study, Decreased Peak Expiratory Flow Associated with Muscle Fiber-Type Switching in Spinal and Bulbar Muscular Atrophy was just published. Check out the Living with Kennedy's Disease blog for comments on the study as well as links to the news article and published results. To view the blog, click here.

January 13, 2017 - Increased mitophagy in the skeletal muscle of spinal and bulbar muscular atrophy patients. To view the article, click here.