Niraj (far right) earns a small salary and already finds it difficult to keep a family of six people, including his parents and two children

Neetu said: “The doctors told us to get the CT scan, MRI done. We got the tests done but that was of little help.

“The doctors said they could not operate on my son - that there is no cure for his disease.

Niraj added: “We felt sad. We were worried about how we would be able to arrange for his treatment.

“We took him to Benaras Hindu University Medical College, we left no stone unturned, but there was no positive response.

“We are worried about his future as to how he could lead his life with such deformity.”With the help of family and friends the community raised the money for Niraj to have his first operation in November which cost £1000.

It will take a total of six operations and over £5000 to completely transform his face - and the family are appealing for help with funds to get him the medical treatment he desperately needs.

Doctor G S Kalra at the SMS Medical College in Jaipur, who has examined Aditya, believes he is suffering from a disease called Plexiform Neurofibromatosis - which could be treated with a series of operations.

This means all the structures in the area of the tumour, especially the nervous tissue, is enlarged and keeps on growing until the child grows up.