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Thursday, 17 July 2014

A Child Who Was Born Without Nose.

Name,'Tessa' was born with arhinia, a condition so rare that only 47 cases have been recorded in recent medical literature.

In addition to living with a deformity, Tessa also has sight problems.

When she was 11 weeks old, she had surgery to restore some vision to her left eye, but she emerged from the procedure completely blind in that eye, according to the family’s fundraising page. She is able to see well out of her right eye.

But one of the family’s greatest impediments has had nothing to do with now-18-month-old Tessa’s physical condition.

The Evans estimate, have felt distraught about the lack of accurate information available.

Early on, the couple read a disheartening journal published by a surgeon about babies born with arhinia. It said, "these babies have poor mental and physical abilities and it's best to terminate the pregnancy," Grainne told the Telegraph. "That statement is false on so many levels."

Tessa is slated to have a first-of-its kind surgery at the Great Ormond Street Hospital in London, where doctors will give her a nose mold.

While her treatment costs are covered by insurance, the family has also been laden with exorbitant travel costs to London, among other expenses that frequently arise. The family has set up a fundraiser to help offset some of the financial burden and has raised more than 600 British pounds (around $1,000) since they launched the campaign.

But soliciting donations isn’t the only reason they’re putting their daughter in the spotlight.
All is well...