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CFFC Facebook Posts – February 2018 – Part 1

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of February 2018.

02/01/2018 – The Journey to My First “Lung-iversary” – This story will resonate with many in our local CF community as the author describes the anxiety of the wait for donor lungs, the challenge of the surgery and the freedoms experienced post-transplant.

02/04/2018 – CF MiniCon: Self-Care and Relationships – CFF is offering another opportunity for the CF community to connect with their peers through a virtual conference. This event is open to family members as well as those living with CF.

02/05/2018 – When the Patient Is a Hostage – Hopefully, you have not – and will not – encounter such a situation as extreme as the one described in the article; however, it is a strong reminder of the need to advocate for your care. After all, nobody knows you better than you do.

02/06/2018 – The Other Side of the Antibiotic Coin – This story, although more dramatic than many in the CF community, clearly describes the critical balancing act between the miracle of today’s drugs and their debilitating side effects.

02/08/2018 – Using artificial intelligence to follow and predict cystic fibrosis symptoms – Cystic Fibrosis Trust serves the CF population in the United Kingdom in a way similar to how Cystic Fibrosis Foundation serves the US population. This article from last November describes two studies funded by Cystic Fibrosis Trust that seek to improve responsiveness to symptoms as they emerge.

02/10/2018 – Participating in a Clinical Trial Is Empowering – Medical advances require participants in trials to evaluate the effectiveness and safety of new treatments. Check with your CF team to learn about trials being run in your area.