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The UK Infantile Spasms Trust (UKIST)

The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare seizure disorder infantile spasms, also known as West syndrome. The charity offers a lifeline to anxious parents via its online community, and works alongside medical professionals to raise awareness of this little known condition, which can be very difficult to recognise – but potentially very damaging if left untreated.

INFORMATION & GUIDANCE

Infantile spasms occurs in very young children, usually under the age of one, and causes babies to have seizures that can look very similar to colic and reflux. However, a baby with infantile spasms is in fact experiencing a chaotic brainwave pattern that can lead to loss of skills and brain damage, so early diagnosis and treatment is key.

SUPPORT OUR CHARITY

There are so many ways to support UKIST and help us fight for a better future for children with infantile spasms.

You can help us by simply sharing our video below, to raise awareness. Alternatively, you may wish to make a donation to support our work, or raise money by hosting your own fundraising event or taking part in an organised event.