2 Responses to The Medical Protocol – Here are some sample drugs, go ahead and try them

The type of antibiotic prescribed by a general practitioner doctor is VERY important if you have UC. Since UC essentially wipes out the bacteria in your colon, taking antibiotics can make your condition worse, since they are also wiping out bacteria.

Some antibiotics are hard for the colon to handle – for any number of reasons. After I got diagnosed, my GI doctor suggested to me a couple of doctors to consider switching to that work in conjunction with him and have experience treating UC patients. There’s been a couple of times I’ve had to go to the ER and I always STRESS to the ER doctor that I have ulcerative colitis and I have to be careful of the antibiotics I take. A couple of those times, the doctor prescribed the wrong kind of antibiotic and my UC symptoms flared like crazy – so I’d have to go to my GI doctor and take more rounds of steroids and other medications to get my UC under control.

Some of the antibiotics that seem to work well with UC patients (my doctor has told me, and I’ve taken with little to no adverse affects) is Bactrim, the Z-pack, Amoxicillin, Cipro, and Doxycycline.

I believe its all based on severity, other diseases, and really just personal preference (if they want to treat the inflammation or treat UC as an autoimmune disease). Prednisone is always prescribed to get things under control. My doctors have always treated my UC as an autoimmune disease so they only use immunosuppressors like 6MP and methotrexate (also used in chemotherapy). Then again, I also have Autoimmune Hepatitis, so anti-inflammatory drugs weren’t going to work on both diseases. Mesalamine is part of the anti-inflammatory drugs. Remicade and it’s counter parts are immunosuppressing biologics and they specifically attack a very specific part of your immune system and it has had a lot of success instead of widespread immunosuppression like 6MP or MTX. Unfortunately, the drug itself has some potential to cause your body to develop antibodies to it (which is the main reason it doesn’t work for some people). I think it also depends on if you started with a pediatric gastro or an adult gastro. Pediatric gastro’s are more conservative with new drugs since kids are much more complicated and sensitive and stick to things that work across the board and don’t change a lot there after (they aren’t prone to stopping drugs once remission is met, they keep some of them going to help maintain remission). Because pediatric gastros are more conservative they have a different method for remicade. I have always received “pre-treatments” to remicade (hospital grade benadryl and IV steroids) to prevent any reactions to the medication, they just do those about an half hour before starting remicade. Remicade infusions in childrens’ hospitals are given over 5 hours, regular hospitals over 1-2.

Why there’s so much difference in drugs is that each drug has its merits and its problems. So they’re always trying to access the severity of the disease with which drug will help it with minimal side effects (especially long term). And everybody metabolizes drugs different. I just didn’t metabolize 6MP (so my blood levels were always too low for the drug to work) and when they bumped up the dose, my body had a toxic reaction.

Recent Reviews

I am a Mom of a teeneager diagnosed wit UC and when I was searching for common ground,comfort and the real story this was it! I haven't finished the book but I have already taken away suggestions for my son's care and utilized them. So that was worth already the cost of the book and recipes. Thank you Adam and I will review again, I am sure positive, when I have time to finish reading and applying!

I found Adam’s book to be very information on about having UC. I am a mom of a UCer but I also have digestive issues. It can be overwhelming at times and Adams book brought me hope. I highly recommend it as a book to help you find your way through it.

Thank you for sharing your story and journey to remission Adam. I am integrating some of your ideas and asking more questions of my health care practitioners to get on my own path to remission faster. Also, the immediate changes I made in my diet has been encouraging to alleviate some symptoms.

Thank you again. I look forward to the next iteration of your cook book.

What an amazing resource. It definitely opened my eyes to the world of UC. I love how realistic Adam was about all the different treatments, and the details of the struggles to get to remission. While it definitely wasn’t what I wanted to hear (I think we can all agree it would be nice if we could just wake up and feel better), it was definitely comforting to know I’m not the only one struggling hardcore to get to remission so that I can hopefully control my pancolitis with lifestyle and not medications eventually. The book had me laughing at times and in tears from being able to relate to the struggles. Thank you so much for writing this book. It’s been such a valuable resource in so many ways, including helping me learn ways to share information so my family and friends can have a better understanding of what it’s like. So again, thank you for this Adam. It is a must read for anyone struggling to gather as much information as possible.

I honestly felt like you wrote my biography. I've lived my life the same way you did, eating, drinking and partying without having to worry. I did have signs along the way as well but didn't take to much notice to it until the blood showed up. I was diagnosed in October 2016 and at the time my GI told me it had nothing to do with my diet, so I lived my life the same way I always did. I've been trying many different meds without little or no results. After my 29th birthday in June 2017 I started feeling more sick and the weight loss had started, I've always been a skinny guy and ever since I lost quiet a bit of weight which has been something that just makes me feel more uncomfortable. I consulted a Homeopath in October 2017 and she started me on the Paleo diet, while researching that I came across your site and the SCD diet which I started in December 2017. I didn't do any of the diets a 100%, but I did start seeing results. I went a bit off the rails during the festive season while traveling but I'm easing into the SCD diet again and plan on going 100% this weekend. UC has caused a lot of stress for me but I've come to accept it and look at it in a positive way. My goal is to eat healthy, put some weight back on and start living a normal life again. I haven't let UC stop me from living my life although it has limited me, but thats all going to change! Thank you for sharing your story and being an inspiration to all of us.