The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration is the place to turn for accurate information, compassion and hope when lives are touched by frontotemporal degeneration. FTD, also called frontotemporal dementia or frontotemporal lobar degeneration (FTLD), is a disease process that causes a group of brain disorders characterized by changes in behavior and personality, language and/or motor skills, and a deterioration in a person’s ability to function.

Our Mission

Our mission is to improve the quality of life of people affected by FTD and drive research to a cure.
We work every day to advance:

RESEARCH: We promote and fund research toward diagnosis, treatment and a cure.

AWARENESS: We stimulate greater public awareness and understanding.

SUPPORT: We provide information and support to those directly impacted.

EDUCATION: We promote and provide education for healthcare professionals.

ADVOCACY: We advocate for research and appropriate, affordable services.

Our Values

We value knowledge, collaboration, respect, dignity, and compassion. These values are core to our ability to lead a network of caregivers, persons diagnosed, medical professionals and government to forge change that will deliver our mission and achieve our vision.

Our Vision

We envision a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented.