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After the crash (all the ribs, both clavicles, sternum and vertebrae from C7 to D8 fractured plus perforation of both lungs) , I was hospitalized for 10 months (resuscitation department, intensive neurosurgical therapy then infectious disease department). During this time I contracted countless infections including Acineto bacter, Klebsiella, Candida, Pseudomonas... This delayied the stabilization of my spine.

The worst period from the clinical point of view has passed and I moved into Santa Lucia spinal center in Italy (Rome), not a good choice, poor physioterapy, complete absence of occupational therapy and doctors completely devoid of humanity.

Now I'm at home, I do physiotherapy 3 x week and do a lot of exercise, the hardest problems to solve are the bowel program and the neuropathic pain (concentrated in the abdomen and anal area).

Welcome to the CareCure community. Thank your for sharing your medical history thus far. Let us know what further experiences you’d like to share or questions you have.

pbr

The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

Hello El Bandido. From the state of Michigan in the USA. Hang around and absorb some of the stuff on here. You might even get to like us. Sorry about your injury. Sounds like it was a bad one. Are you a member of one of the riding groups like Nike or, Red Bull? Your rehab sounded intense. The bowel program is a regular bitch. l am a para at T 11. Results of a motorcycle accident. Been 10 years now. Biggest concern are those secondary infections caused from simple little things that happen. Best wishes to you. Post any time. I'm sure you have many interesting things you can tell us about. ......Bigtop1

Thanks for the welcome, I'm not a member of those riding groups, I have only one thing in my mind, to maximize my recovery and my autonomies. I'm physically and genetically prepared for endurance sports so I don't exclude one of it in my future, but it's not time yet. I hope I'll have only good and interesting things to tell you.

Starting an home-made trial with leuprolide, the only drug with some scientific evidence in literature that i can find in my country and self-administer, i also started a TRT protocol with oral testosterone undecanoate, but this form of testosterone gives me an increase in neuropathic pain and in spasms ubearable, so I switched to transdermal route.

I was a cat 3 masters cyclist (~40 races/year, mostly road/crit, but some mtb and cx) when I was injured at 47 years.
I'm glad to help however I can.

My drug regimen is pretty simple:

Lyrica for nerve pain, 300 mg 2x/day - need to ween off this as it really doesn't help much after a couple weeks but stopping is crazy pain.
Baclofen for spasticity 4x/day
Docusate for stool softener

I used to take Oxybutynin but now do botox.

I take the following as needed:
Valium or clonopin for when nerve pain gets too much (about 1/week)
Tramadol for neuromuscular pain (about 1/week)

My biggest issue is pain. I have substantial intramuscular pain from the implants and at the injury site and I have nerve pain over my entire paralyzed body with concentrations in the right foot and anus area (so fun!).

I'm interested in any of the drugs your taking that are supposed to help with recovery. I've tried 4AP but it makes my nerve pain much worse. I'd like to take 4AP-3-MeOH, but it's not available.