Search This Blog

Thursday, July 11, 2013

That Was Yesterday

Saw Dr. Damon on Monday. Everything continues to track in the right direction. We reduced my Tacrolimus down to 0.2mg and hope to be completely off it within 3 months!

Gleevec continues to help wtih GVHD and my range-of-motion is getting better and better. I can now do 2 or 3 half push-ups with minimal wrist and forearm pain. Only a matter of time now.

Been biking to the ferry three days a week and my energy is good.

On the carcinoma front, the lip is full healed. There's still some weird sensation, but that's to be expected as the nerves re-form.

Follow-up appointments with both Damon and Arron (Mohs surgeon) in September.

On the personal and work fronts, a ton has gone on since my last blog: trips to Paris and Dublin; Marin Fair; Lots of baseball with the kids; and so much more. No time to post about any of that. See my Facebook wall for most of the good stuff.

Two things I will share:

1) The Salesforce National Light the Night team has been established for 2013. We are planning to walk in more than a dozen cities. and have a goal of raising $250k to fight blood cancer this year. Please donate to your favorite sfdc employee once s/he has registered to walk. My page -- completely lame an unmodified -- is here.

2) I just got an email from UCSF with the name and contact info of my BMT donor! I've been waiting 2.5 years to learn who saved my life, and I now I know. Very cool moment. I will be reaching out to him via email, and, sharing this blog with him. There may be a little, a lot, or nothing at all to post here related to my donor. Some people don't put it all out there like I do, and I wouldn't blame him in the least if he doesn't even answer my mail. It's not about that.

OK, fine, here's one pic of the kids from this morning. They love to go outside first thing in the morning (in their jammies) and drop hit wiffle balls over the fence in the back yard:

4 comments:

John - such exciting news, especially about your donor. I'm so interested to hear how this story progresses ... how you were able to find out, etc. I'm starting to learn more about the organ donation process and the protocol for finding out who donated one's new organ, etc. Wonder if it's similar for bone marrow, etc. Can't wait to discuss. xo

Love the pic of the boys! Maisy's a big pajama fan (and of course Floyd and Orion fan). We should have a daytime pj party. And so neat about your donor. I hope you learn more, but even if you don't, I hope he feels good reading about you, your journey, and your family. XO