Month: January 2013

Sadly, our wonderful time away is coming to a close. We fly home to California tomorrow (Friday) and I’m happy to say we’re not leaving with any regrets…we knew we couldn’t see or do it all so we enjoyed what we did do and packed in quite a few new and different experiences in our 8 days in Florida! We’re tired but we’re still laughing (not a whole lot of exhausted bickering going on thankfully) and we’re all leaving with full and happy hearts. Reality will probably hit us hard on Monday morning when we return to the school/work/housework routine but I’m grateful we’ll have the weekend to get settled a bit before we have to run too fast. 🙂 So, here’s our last “sneak peek” post…thanks for all the sweet comments this past week. It has been so much fun sharing this experience with you all…thank you for sharing in our joy!

Day 6-

We spent our last “theme park” day at the Magic Kingdom…Rudy REALLY liked the Tomorrowland Speedway!Wilson got a little permit practice in….Rudy got to ride the “People Mover” while the big kids and Dad went on Space Mountain…soooooo doable with the portable oxygen concentrator!! 🙂We got to meet ALOTTA characters! Including…Buzz Lightyear……and Ariel…(Rudy liked Ariel)……apparently, the feeling was mutual because Ariel gave Rudy a big ol’ kiss!…Next up, Woody!…and Cinderella! Check out Rudy holding Cindy’s hand!Our very own Davy CrockettWe ended our day with the fireworks show…Wilson held Rudy so he could see…precious. The fireworks, the music and this image made me cry. 🙂It was a good day!

Day 7 –

On day 7 it was time for us to pack up and check out of our GKTW villa.Once we were all packed up, Rolf and the big kids tried a simulated skydiving experience nearby.Rudy and I got to watch and it was pretty cool…here’s Wilson flying high with the help of the instructor!

That evening we headed back to GKTW for the “Village Idol” talent show…Olivia and Rudy sang “Twinkle, Twinkle Little Star and……Max sang a Lumineers song.After the talent show, we made one last stop at the Ice Cream Shop for a scoop of mint chocolate chip…Rudy’s new favorite treat! Yum!

Day 8 –

We spent our last full day in Florida at a nearby hotel to decompress and rest up before our long trip home to CA…we sat by the pool most of the day and enjoyed a couple of onsite activities like……tie dying tshirts and……eating yummy sno-cones!Oh yeah and Rudy likes sno-cones too!Rudy tried hard but just couldn’t keep up with the big kids…he took a long poolside nap! Ahhh, the sign of a good day and a great week of fun! 🙂

This is what an ice cream overdose looks like!Off to the Magic Kingdom for a quick interview with a SB News Press Reporter who just happened to be vacationing in Orlando this week!Then, it’s off to Epcot!Here’s proof that I’m on this trip too! 🙂“Oh great, now there are two!”

Day Five –

Front page of the Santa Barbara News Press…it must have been a slow news day. 🙂Mary Poppins paid a visit to the village and is pretty much perfect in every way!Rudy hanging out with the big boys in the game room…Pool is a favorite!Fishing with Olivia…Enjoying some “down time” at the water playground and pool!

We’ll want to write a lengthy wrap-up post once we get home to document all the exciting and tender moments we’re experiencing on this trip but we also can’t wait to share some of our favorite pics so here’s a sneak peak – page 1:

Day One –

It was Christmas at the Village (like it is every Thursday night) the night we arrived and we enjoyed a “meet & greet” with Santa – who gave presents to all the kids!It can’t be Christmas without snow, right? Rudy’s first look at Christmas snow!!

There are rides like this all over the main village area…you can hop on and ride anytime you want! Rudy likes the rides for sure!

Day Two –

Our new friends from KU in the Village Castle of Dreams!Proof of our stop at Disney’s Hollywood Studios Theme Park.

Rudy wasn’t too sure about Shamu at the Village Pirates & Princesses party…ha

Day Three –

An early morning horseback ride!Official wranglers!

After that, a spin on the carousel on our way to breakfast!Day three’s adventure outside the village was at Universal’s Island of Adventure……where we had a Meet & Greet with ALL the Marvel Superheros!!!We ended our day with a poolside dinner……and a movie! 🙂 (Rudy rocking the water wheelchair)The big kids having a little fun too! 🙂

Sadly, our wifi access is spotty here and I (Trish) haven’t been able to get online the past two days to share all the amazing details of our trip so far (it’s kinda hard to write posts on an IPhone)! So, for now, I just wanted to report that we made it safely to Give Kids The World and the attention paid to the kids here is beyond description…it’s simply beautiful…it brings me to tears and I can’t wait to share more! Thank you for your prayers for safety…

We made it safely to FL and from the get-go we’re amazed at all the special things people do for wish kids. The pilot insisted Rudy come in and look over the cockpit. Livy squeezed in cuz she’s cute too. As cute as I made myself for the picture I never got a turn in the seat.

Almost too much happening to take pictures or blog, but so overwhelmed by God’s goodness to Rudy and our family. On with the fun!

Rudy had his Make-a-Wish “send off” party yesterday evening. Wish granter Anne and her trainee Joseph came to the house with pizza, salad and cupcakes to present Rudy and our family with the official packet of information for our trip! It was a fun evening that helped build our anticipation and excitement! It’s sinking in that we’re actually going on this amazing adventure and we are all so grateful! Honestly, this is something we have joyfully (and tearfully-I can’t read about a Make-a-Wish trip without crying) watched other heart families do over the years since Rudy was born but I just never imagined we’d get to experience it…I’m nervous about all the traveling and getting from point A to point B but I’m also anticipating special experiences that will lighten the heart of our family. We have a VERY early 3am departure time out of Santa Barbara on Thursday morning which means in less than 48 hours, we’ll be en route to Florida!!!! Yikes/Yeay!!!!

Wish granters Anne and Joseph share the fun with Rudy!Anne sure had Rudy’s attention when she pulled out a bag of goodies for him! Ha haShhhhh, the trip is pretty cool but Rudy would have been perfectly content with just the football! Ha

It just so happens that one of my wishes is coming true too…We discovered in the planning of this trip that airlines do not allow oxygen tanks on board so we needed to arrange to travel with an oxygen concentrator (a machine that converts room air into oxygen). I’ve actually been working to acquire a portable oxygen concentrator for Rudy for over a year (since he started school) with no luck through our insurance and medical supply company. Because the purchase price of these units can easily run in the thousands of dollars, it has been beyond our reach. Inogen is a Nationwide Accredited Homecare provider that specializes in oxygen therapy and just happens to be headquartered here in Goleta. Make-a-Wish gave them a call and they agreed to lend us their “top of the line” unit for the trip!!! I still hope to purchase one at some point soon but the use of one for Rudy’s trip will completely transform the experience for all of us! We picked it up yesterday and Rudy adjusted to it perfectly (It’s a little different in that it doesn’t give Rudy a continuous flow of oxygen like a tank or our home concentrator but instead is triggered to give him oxygen when he takes a breath). Thank you Inogen!!!

Check out the difference between our home O2 concentrator and the InogenOne Unit! Amazing!!

Thank you all for your prayers and for sharing in our excitement! We are so humbled and grateful. Stay tuned for some fun pics..:)

We’re in a bit of a frenzy in these parts with the typical need to get a lot of things done before one heads out for a vacation. Between school, work, household and activities it does feel like all of us will have very full schedules up until departure next Thursday. We’re excited. Some of us are packing. Some of us were packed three weeks ago (guess who–also the same sick person who has the Valentines ready to go). Some of us have yet to pack (and won’t until after sundown Wednesday). Lots of ground to cover between now and then but that makes the prospect of settling into an airplane seat and breathing a sigh of relief seem all the more exciting.

In the meantime, there’s still the occasional impromptu moment where the kids are goofing around after dinner. I hear there’s pretty good entertainment in Orlando, but I’m not sure if they can top this:

There’s so much in store for us in the weeks ahead, but more important than all the cool attractions is the fact that we get to experience them as a family. Rudy is one of those kids that can’t actually articulate his own wish so when the Make-A-Wish granters interviewed us, we both felt clearly that his would involve the siblings he loves so deeply. There’s nothing like watching him light up even for the silly Chubby routine. Here’s looking forward to a week’s worth of golden moments!