Wednesday, February 2, 2011

This is my nine year old. She will be ten in a few weeks. Crazy to think that I have a kid that old. A little back ground on us, we belong to the Church of Jesus Christ of Latter Day Saints. And the other day we went to eat at the good ol' Chuck O' Rama with Nate's Parents and sister and brother-in-law. We were seated and low and behold Henry B. Eyring and his family were eating at the table behind us. He is the first councilor in our church. Next to Thomas S. Monson who is our Prophet. Needless to say, we were on our best behavior and Macy and Adrie were excited to see him. Of course we didn't want to bother him while he was eating and everyone else seemed to be paying the same respect. The girls were so excited and asked if they could say "HI" to him but I told them that now was not a good time. So as he was leaving, a handful of people had surrounded him to shake his hand. Macy took this as her opportunity and got up on her own accord to join the group. Being the only child, she was getting aced out and realized that she would not get through the group to shake his hand. She sheepishly came over to where I was at (getting dessert of course) and acted like she was on her way over to me anyway with a look of discouragement. President Eyring saw this and followed her and asked to shake her hand! This absolutely melted my heart along with hers. She talked about it for days about how he shook her hand. I was so grateful that he noticed her because it totally made her day. And if you know my shy Macy, this is not something she would normally do.

Ellie's Angels

Grab Ellie's Race Button!

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"Sometimes the pattern of life seems monotonous and discouraging. It is like climbing a mountain and after reaching the top, getting knocked back down to the bottom to climb it again; but I guess the fun is in the climbing and not the arriving!"-Marjorie Pay Hinckley

Our Family

Nate, Becca, Macy, Adrie and Ellie

Ellie's Story

I am the author of this blog, my name is Becca and this is our story. My husband and I have four beautiful girls. Macy, Adrie, Eve (who was stillborn) and Ellie. Ellie is the reason for this blog. She was born with a neuroblastoma in her neck and a coarchtation of the aorta. She has congenital heart disease and severe cardiomyopathy due to a late diagnosis. We are hopeful of the outcome and wanted to share our journey with family and friends.I wanted to update her status as of January 2010. Ellie has physically done well despite her heart not seeing any improvement. We are still in limbo of whether she will need the transplant, but we are hoping to avoid that. The tumor was shrinking, but after the last scan appears to be slightly larger. We have a follow-up MRI in February, so wish us luck on that. She is one year old and talking and trying to stand on her own. She is such a joy to us and her sisters and keeps us all entertained.

Macy

Macy is such a bright personality. She loves to take care of her siblings and is the perfect non-rule breaker. She is such a good example to her little sisters and is very nurturing.

Adrie

Adrie is our spitfire and Is our drama queen of the family. But she is extremely tender hearted and is very observant of others and their feelings.

Eve

"Some people dream of angels, we held one in our arms."

Ellie Marie

This is Ellie! She is the reason behind this blog. She is the bravest strongest girl I know!!!

Claire

The baby of the family of all girls! She has been such a happy go lucky child. She keeps us laughing with her cute and fun personality!