Transplant and Pulmonary Hypertension

The Emotional Impact of Listing

The process of becoming listed as a lung transplant candidate and the ensuing wait period can be an extremely stressful time for both the patient and those who care for him or her. A range of emotions and behavioral manifestations of these emotions may come with the listing and waiting process. It is important to be open about your feelings and have someone to talk about them with.

Keep in mind that it is normal to be stressed at this time: the battery of tests to get listed, the financial aspects of transplant, the possibility of relocation and, in some cases, false alarms for donor organs are all stress-inducing. Other emotions that are common in transplant candidates include anxiety and frustration at having to wait or guilt that the donated organ will come from a deceased donor. Again, all of these feelings (and many more) are normal and are perfectly OK to feel, but it is important to develop positive coping skills to get through this difficult time.

While you are waiting, a few things to keep in mind:

Organ donation and transplant are consistent with most major religious denominations in the U.S. If you are having misgivings for religious reasons, speak with a spiritual leader.

Organs do not have memory. Contrary to what some people believe, personality traits cannot be transferred from donor to recipient during organ transplantation.

There are positive aspects to waiting; this period provides time for reflection and preparation for your life post-transplant.

There are many resources and different approaches to help deal with the broad range of emotions that transplant candidates feel. The United Network for Organ Sharing provides a state-by-state support group list for organ recipients. Your transplant center may also provide emotional support or be able to connect you with a support group in your area.

In addition to attending a support group, other helpful approaches include:

Develop a new hobby

Add structure to your daily life

Talk through your feelings and emotions

Breathe

Pray

Set goals for the future

Engage in regular exercise

Maintain contact with friends and family

Use relaxation techniques such as meditation, visualization, progressive muscle relaxation, or yoga

Ask your doctor to recommend a prescription or over-the-counter medication to treat anxiety

Language Based on Treatment Fact Sheet Issued by PHA's Scientific Leadership Council

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.