Medical Professionals

This list is a directory of selected Canadian health centres whose staff has expertise in Loeys-Dietz syndrome and related disorders. It may be necessary to obtain a referral in order to be treated at these centres.

If your medical team is not listed below, please forward details to info@loeysdietzcanada.org for inclusion in a future revision of this directory.

Quebec

Montreal Heart Institute

Affiliated with Université de Montréal

Cardiovascular Genetics Centre

Aorta and Connective Tissue Clinic

The clinic was the subject of a study and subsequent poster titled First 2 years of experience of an integrated multidisciplinary clinic for adults with aortopathies in a Canadian context: view it here.

Children’s Hospital of Eastern Ontario (CHEO)

Affiliated with the University of Ottawa

Connective Tissue Clinic

“The connective tissue clinic at CHEO accepts referrals for patients with suspected underlying heritable connective tissue disorders. We aim to diagnose and care for patients and families with Loeys-Dietz syndrome, Marfan syndrome, vascular EDS and other forms of familial thoracic aneurysms. We also see patients without a family history if they present with a significant aortic dilation before 50 years of age or if they sustained a spontaneous arterial dissection prior to age 50 in the absence of another identified etiology. Finally, we see patients with significant joint hypermobility in the presence of additional findings. Care is provided in close collaboration with the team from the Aorta Clinic of the Ottawa Heart Institute for our adult patients and with Dr. Lai and other pediatric cardiologists for our pediatric patients.”

The clinic is open to individuals of all ages, despite it being housed in a paediatric hospital.

Western Canada

The Heart Centre at St. Paul’s Hospital

Providence Health Care

Pacific Adult Congenital Heart (PACH) Clinic

“The PACH clinic’s multidisciplinary team of physicians, nurses, psychologists and social workers provide clinical expertise to patients 18 years and older with congenital heart disease. Individuals who are newly diagnosed with congenital heart disease and those transitioning from pediatric programs receive ongoing follow-up and care for their cardiac condition.”

“The Heritable Aortopathies Clinic (HAC) provides assessments, care and follow up for people with a wide range of genetic disorders that stretch or weaken the aorta (e.g. Loeys-Dietz and Marfan syndromes). The team includes doctors, nurses, a genetic counsellor and other health care professionals and specialists at St. Paul’s Hospital and Vancouver Coastal Health Authority.”