Parents

Neurocutaneous Syndromes

Resources

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March of Dimeshttp://www.marchofdimes.comThe March of Dimes seeks to prevent birth defects, infant mortality, low birthweight, and lack of prenatal care.

Sturge-Weber Foundation (SWF)http://www.sturge-weber.comThe mission of the SWSF is to improve the quality of life for individuals with port wine stains, sturge-weber syndrome (SWS), and klippel-trenaunay syndrome (KT).

Ataxia-Telangiectasia Children's Projecthttp://www.atcp.orgThe A-T Children's Project raises funds to accelerate research aimed at finding a cure and improving the lives of children with ataxia-telangiectasia. This website contains information for parents about the disease and how it is treated.

National Neurofibromatosis Foundation (NNFF)http://www.nf.orgNNFF is a nonprofit foundation dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis.

Tuberous Sclerosis Alliancehttp://www.tsalliance.orgThe Tuberous Sclerosis Alliance is dedicated to finding a cure for the many aspects of tuberous sclerosis complex (TSC).

Von Hippel-Lindau Family Alliancehttp://www.vhl.orgThe von Hippel-Lindau Family Alliance is dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.