5 Reasons I Smile

The ultimate goal of this blog is to spread awareness and show how beautiful life can be. We have four amazing daughters. Our youngest was born with Down syndrome. If just one person stops here and leaves with a different, better perspective about Down syndrome, then it is worth it. Regardless, I have 5 Reasons to Smile!

Friday, October 8, 2010

Down syndrome Awareness Month--- 31 for 21, I MISSED a day!

I can't tell you how disappointed I am that I did not post yesterday, October 7th. I knew posting everyday would be a challenge. I don't have time during the day and once the girls are in bed I have about 2 million things to do. However, the 31 for 21 campaign is such a great idea and I wanted to be part of it!

So, my big mistake.........last night while I was tucking Brynn into bed, she asked me to lay down with her. I never got back up! Well, I did get up when I felt someone tapping me on the shoulder and I heard Jaden's voice, "Mom, I'm waiting for you to come tuck me in." I was in such a deep sleep I sat up and said "Where am I?" It took me a few seconds to realize I was in Brynn's room. I followed Jaden into her room tucked her in and from there went straight to bed. I didn't even wash my face.

This morning I mentioned to Diondray how disappointed I was that I didn't post yesterday and he said, "I knew you would be and I was going to post something for you, but I didn't know your password." Isn't he the greatest?! He knows my password now.

.................................................................

Yesterday Kamryn said, "elcome". (your welcome)

She handed me something and I said, "Thank you" and she said, "elcome."

I paused, said "thank you" again and she said "elcome" and walked off.

I stood there with a HUGE SMILE ON MY FACE. This girl, she never ceases to amaze me. I must say, all my girls amaze me, however this month it's mostly about Kamryn. BECAUSE, as you know, it's Down syndrome Awareness Month. The strange thing is, the fact that Kamryn has Down syndrome means less and less to me everyday.

At first those two words were overwhelming. When I heard them in the hospital for the first time, I couldn't breath. (I wrote about it a few months back). I remember lying in bed thinking to myself, the statistics are 1 in 800 or .00125% that this could happen, so how did it happen? Before I knew the statistics I just laid in bed thinking, how did / does this happen? Today, I don't even care about the statistics, any of them. Especially statistics about my daughter. Statistics, don't mean a thing to me.

Today, Kamryn said "elcome" statistics say she probably wouldn't do that at this age. I say (enter your choice word here) the statistics. :) Statistics don't know me, my family or my daughter. Forgive me if I sound bitter. The medical community and the outdated stereotypes / statistics they gave me left a bad taste in my mouth.

Not anymore, she has been soooooo sweet!!!!!! :)

Such the big girl.....

Diondray can't figure out how we left the house to get tissue and trash bags and came back with this.......

Look at that face :( I just love this picture! Daddy said, "Kamryn, no touching the fish!" She was so mad!

1 comment:

Oh...."elcome" is so dang cute...I can just picture her saying it!! I totally hear you on the disappointment....I've missed, gulp, several days...some from the same "snuggle until I fall asleep!" and then mom dozes off all night and then other excuses being the dreaded busyness word. I love your posts though!!!