Bloch-Sulzberger Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bloch-Sulzberger Syndrome. You're not alone.

Hello my daughter, how is born in may this year(2013), has incontinentia pigmenti. And I am looking for people, how are in the same position. My Engels is not so good, because I am Dutch. But I like to write with people to share the experience around this rare syndrome.
Greats...