Friday, February 1, 2008

So I hung around for about an hour before going to lunch, hoping to catch Dr. Bolognese with his report on Lacie. Of course, immediately after I departed he showed up! When I returned from lunch downstairs, they directed me up to the 9th floor neuro dept to speak with him.

The report was very good. The surgery went to plan with no complications or surprises. He said there was indeed a "fair amount" of tethering that was easily detectible once they had her opened up. He mentioned that her dura was a little thinner than normal, but not nearly as thin as some other patients he has seen with EDS. Thin, delicate tissue is a common side effect of EDS and it can create complications with the healing process, such as cerebral spinal fluid leaks in this case. The dura, by the way, is the thin membrane that encases the spinal cord, allowing the spinal fluid to flow from the brain on down and back up again. So, nothing unexpected, and I think maybe even additional good news in that her dura is not as thin as it could have been.

Hoping to see her in her room in the next hour or two. I'll post another update this evening when I get her room number and so forth as I know some of you have asked.

6 comments:

Anonymous
said...

I lit a candle for Lacie this morning and I will keep it lit until she comes home. Sounds like all went well. She is in the best of hands. Your family is in our thoughts.Tanya, Matt, Katarina, & IsabelleMonroe, NY

I've been thinking about Lacie all day. I also asked all the students and teachers at Old Union to remember her today. I'm so glad to hear that the surgery went well! That's so neat that you all got to meet Julie Carter, too. Give all the TCI guys and gals my love (and Dennis at VH, too!) I'm so excited to hear your good news. I'll continue to remember you all in my prayers.

John,Oops! Sure enough, looks like my earlier comment didn't make it through! Great news about the successful surgery! Praise the Lord! Y'all have been on such an amazing journey since all doors began to OPEN! And what an extra measure of grace that you were able to meet, talk with, and be encouraged by Julie! We are grateful for the updates and still praying! now the recovery begins!Love from all of usJo

Lacie's MRI

My Chiari Brain Tail ~ The difficulties of Chiari (pronounced key-ARE-ee) go beyond balance, as a lack of space at the base of the skull pushes the cerebellum and brain stem into the upper spinal canal, placing pressure on the spinal cord.

September 26, 2006 ~ The day that I was introduced to my Chiari (pronounced key-ARE-ee)

I have set up this blog in an attempt to keep friends and family posted as I embark on this new journey that I have been commissioned to take. Bear with me ~ along with my experiences, you will likely find some random ramblings about my latest passions, too. Here's my e-mail address if you want to drop me a line sometime: lemorrison70@gmail.com

Hope In You

Courage

Fearlessness may be a gift, but perhaps more precious is the courage acquired through endeavor, courage that comes from cultivating the habit of refusing to let fear dictate one's actions. ~ Aung San Suu Kyi

Leave Your Cares To The Sea

To Be Fully Human

To be fully human is to believe in something or someone,
to know that it's possible to face the unimaginable and
somehow put one foot in front of the other until you manage
to find your home again.
~ Oprah Winfrey

Ancient Buddhist Blessing

May no one who ever meets me have a meeting of little consequence. May the simple fact of our meeting assist in the fulfillment of their wishes. May I be a lamp in the darkness of life, a home for the homeless and a servant to the world.