Here Are My Favorite Psoriasis Websites. What Are Yours?

An editor at Everyday Health suggested I write an entry on psoriasis websites from a patient’s perspective. While I enjoyed looking at many of the sites out there, it was a tiring process! To save you some of the trouble I’ve assembled a few sites here. No doubt there’s more out there to discover, and if you want to nominate other sites for me to look at, leave a comment.

Even better, if you have an idea for a psoriasis resource online there’s lots of room for you to do so. The psoriasis community can always benefit from those who are honest and dedicated to the cause of raising awareness and providing support.

I hope you’ll get as much as I did in engaging others who courageously live with psoriasis and share their experiences and feelings. Please note that the following list is in no particular order or ranking.

National Psoriasis Foundation’s Dr. Tell Me is a medical expert blog where you can find answers to whole spectrum of questions on psoriasis and psoriatic arthritis. A helpful search engine and tag cloud guide you to quickly find blog posts of immediate interest. I like this blog as they address the kinds of questions that are on my mind, with easy to understand, medically sound responses.

The Psoriasis Spot. Dudley Dix is a South African yacht designer who has had psoriasis since 1985. The description on the site reads, “A blog by someone who successfully self-treated psoriasis for many years, encouraging others to take care of themselves with more thought to improving their psoriasis.” Besides being quite physically active, Dudley presents a viewpoint that I personally need to keep in mind, the importance of taking responsibility for your health and making sensible lifestyle decisions.

Jessica and Psoriasis. I can relate to Jessica Gough’s experiences with psoriasis as someone who also started having psoriasis symptoms at age 7. Jessica is a young woman — age 20 — who has also found cyclosporine to be an effective treatment (as I have), but rotating off brings about some really big challenges. She balances work, school, life, and treatment for her psoriasis. She mentions that she has an understanding boss — so they must exist!! Hopefully, with education and awareness, employers can make accommodations for people with psoriasis.

Psoriasis Psucks. I don’t normally go on tumblr sites, but I’m familiar with the photo/micro blogging service from my teenage daughter. They can be a bit edgier than other material on the Internet, allowing for broader expression of emotion and opinion. Sarah’s psoriasis tumblr blogs and reblogs her and others’ personal experiences, stories, photos, and, yes, complaints about managing with psoriasis. By scanning the blog you’ll gain an appreciation of how much psoriasis impacts daily living.

Just a Girl with Spots. Joni’s blog is filled with positivity and strength. She tackles important issues that young women (and all women!) go through, such as wedding season, and how she manages her psoriasis during these joyful, yet challenging times. I especially appreciated her insights on winter — its mysterious ability to flare psoriasis – and small tips that have helped her cope with psoriasis during this difficult season of the year.

Are You Serious? I admit I can be skeptical of psoriasis sites run by big pharmaceutical companies. But Are you Serious? contains some serious content. You can find some basic psoriasis information, as with many other psoriasis sites. What’s unique is the ability to read others’ “stories” with psoriasis (short quotations that encapsulate an experience with psoriasis) and to submit your own. I personally enjoy reading others’ experiences as they remind me I’m not alone and inspire me to keep going despite the daily challenges I face.

My Skin and I. Simon writes an honest blog, as he explains that he writes about “my experiences, feelings, and generally how I cope with Psoriasis.” When I read the entries I find a fellow psoriasis sufferer writing openly and frankly about the condition. In a recent entry he writes about how psoriasis is on the mind all the time and every day — all the decisions, treatments, and discomfort. Wow, that’s just about how I feel each day too.

Reddit. Registered users can post content such as links, text, or questions, which then are voted by users “up” or “down” on this bulletin-board site. You can leave comments and start discussions as well. I searched under psoriasis and found some topics of interest. Adding other words to the search (such as treatment, weather, etc.) led me to another level of reading.

Talk Psoriasis. Another bulletin-board style site is Talk Psoriasis, jointly supported by the National Psoriasis Foundation and Inspire. Over 30,000 members can start a new discussion, post a journal entry, or meet others who live nearby. Another great way to interact with others, get responses from your questions, or share your experiences with others.

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ABOUT THE AUTHOR

Howard Chang

Rev. Howard Chang has lived with severe psoriasis and eczema for more than 35 years, since childhood. In addition to actively blogging and tweeting about skin-related concerns, he volunteers for the National...read more

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