Alopecia is a condition of hair loss for different reasons. There are three auto im-mune types of alopecia; areata, totalis and universalis, and one androgenetic type known as male pattern baldness. The prevalence of auto immune alopecia is about 1,7% of the population, evenly distributed over gender, while about 96% of Swedish men will present with androgenetic hair loss to some extent. There is no treatment for auto immune alopecia, but there are a few treatment options for male pattern baldness, but only with limited clinical effect. Existing research showed that people with hair loss were experiencing a psychological impact affecting their social life, they experienced anxiety and became depressed, and in blogs by Swedish patients with alopecia, these results are confirmed. The aim of this review was to describe patients’ experiences and to find answers to how they cope with their disease and also their experiences from seeking help at care-giving instances. The results showed that patients with this disease, women to a greater extent than men, often present with psychological symptoms related to their condition, Patients felt that they were not taken seriously when seeking medical care for their condition and that doctors were merely interested in treating the hair loss, not the psychological impact of the disease. The lack of transferable results from research on alopecia is discussed and also the lack of available Swedish research.