An agreed approach to the care and support of people with learning disabilities when in hospital - PowerPoint PPT Presentation

An agreed approach to the care and support of people with learning disabilities when in hospital. OR… Taking the horror out of hospital!. What parents are saying…. “Unless we stay with my daughter 24/7 on the ward, then I fear that she would not survive the hospital stay”

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“Unless we stay with my daughter 24/7 on the ward, then I fear that she would not survive the hospital stay”

“Nurses say they haven’t got time to read what parents have carefully and painstakingly recorded”

“Our several experiences at this hospital have demonstrated that all of that (Traffic Light Document) is of absolutely no use at all in preventing needless distress, pain and stress to my daughter”

“My local hospital will not use anaesthetic gel when pulling out her PEG and reinserting a new one every twelve weeks. Why? It is ‘Policy’. The doctors prod and poke about inside her stomach, repeatedly ignoring her gasps (she cannot express her feelings nor cry out nor wriggle away) while they make their attempts”

45% of doctors and 33% of nurses surveyed admitted that they had personally witnessed a patient with a learning disability being treated with neglect, or a lack of dignity, or receiving poor quality care

39% of doctors and 34% of nurses said that people with a learning disability are discriminated against in the NHS

35% of health professionals have not been trained in how to make reasonable adjustments for patients with a learning disability, which can often mean the difference between life and death

53% of doctors and 68% of nurses said they needed specific guidelines on how care and treatment should be adjusted to meet the needs of those with a learning disability

Kyle was a young man with profound learning disabilities. He was blind, deaf, born with cerebral palsy, brain damage and quadriplegia. He had no language but could communicate by making different noises to express feelings, including happiness and pain.

In October 2006, at Basildon Hospital, Kyle died from asphyxiation after his head became wedged in the metal frame of his hospital bed.

Read the evidence presented to the Inquest Jury at Chelmsford in July 2009

In groups, highlight the key issues that led to the death of Kyle Flack

Record these issues on flipchart paper

Decide which of these issues could NOT happen in Lincolnshire, and say why

Which of these issues COULD happen in Lincolnshire and identify safeguarding processes that could be introduced

“Kyle had very complex needs, yet he was left for long periods of time on his own and unable to communicate. When loved ones go into hospital you trust staff to do their job; part of that is to keep them safe. This did not happen.”

“Although the nurses had a duty of care, the standards were so poor: there was poor written documentation, little verbal communication between the staff and our family, a lack of training of staff in learning disabilities, poor leadership and a lack of common sense.”

“The verdict today is a clear message to Basildon Hospital and will hopefully make the staff think and learn lessons”.

“But for us it comes at the expense of our darling son’s life. Our son died alone in a horrible situation which could have been avoided just by simple actions from the staff”