There Are Many Knowledgable Doctors who have a better Understanding of the underlying Mechanisms of Myalgic Encephaloymelitis and then there is the Medical Establishments SET View that has dictated how ME patients are to be treated.

In 30 years the Medical Establishments in our Countries have not moved an inch to improve the Quality of Life of Sufferers and so they wait, ill, bedbound or housebound while the General Population are dished out the same misinformation about the Rehabilitation Treatments of CBT and GET - with absolutely NO TREATMENTS for the underlying Health Issues of Myalgic Encephalomyelitis. When will this farce end and Mainstream Medical Assistance Begin?

One Brave Little Boy, Andrew only 11 years old, waits for help in Ireland - year in / year out ....

Is anyone going to question HOW ANDREW CAN BE SO MEDICALLY IGNORED There are over 17 million peopleLiving Like This

__Science Times podcast interview with David TullerFebruary 7th with David Corcoran of the New York Times:

" ... No patients were interviewed (neither those that made threats or any of the hundreds of thousands who have not) nor were any of the hundreds of the researchers who have never been abused in the story. Instead Mr. Feilden interviewed a physician who is a scientific officer with a patient group who pointed out that the abuse and threats were coming from a very tiny minority of patients and suggested that a lack of research funds was the more likely reason fewer researchers were in the field. Balance? Possibly. Funding issues instead of death threats? Boooring... "read more

BOND UNIVERSITYto receive $800,000 to continue Research into Identifying the Cause and Possible Treatment of Chronic Fatigue Syndrome

_" ... In what is the largest-ever collaborative international CFS project, Bond’s Public Health and Neuroimmunology Unit (PHANU), in partnership with Queensland Health, Stanford University and Incline Village Medical Centre in Nevada, will receive a total of $831,037 over the next four yearsfrom the Judith Jane Mason & Harold Stannett Williams Memorial Foundation(the Mason Foundation)."

“This latest grant from the Mason Foundation will allow us to significantly progress our work by conducting a pilot study which could then lead to a drug trial.

“Ultimately our aim is to develop a clear diagnostic test for CFS and establish a national testing facility here at Bond University, which we believe could happen within the next five years.” said Dr Marshall-Gradisnik.

" As a possible autoimmune disease, CFS patients may be treated by suppression of the ACA or by diminishing the antigen CL in serum. Previous studies have shown that treatment with monoclonal antibodies to B cells reduces ACA levels to normal in patients with autoimmune disease, leading to clinical improvements ... "

International Journal of Cancer Research & Treatment

" Immunological abnormalities to such as a dysregulated RNase L pathway, hyperactive NF-κB, increased oxidative stress and reduced NK cytotoxicity, among others, are present in both diseases. "

HAVE YOU NO SENSE OF DECENCY ?

Science Reporter Mindy Kitei has covered ME/CFS for twenty years and has given testimony at the Chronic Fatigue Syndrome Advisory Committee meeting at Health and Human Services in Washington, D.C.... "As AIDS activist Larry Kramer said years ago about HIV patients: “We are not crumbs.” After thirty years of neglect, ME needs research parity with HIV...." ME patients should have the same freedom to try medications that AIDS patients had in the early days. The AIDS patients became their own advocates because there wasno one advocating for them. The same holds true for ME patients now. Patients are gravely ill, and they have the right to treatment. To say that they don’t--that’s what ismedically indefensible."

Film Preview Voices From the Shadows

a compassionate and moving exposé, bearing witness to the tragic consequences of psychiatric prejudice and medical ignorance about one of the most prevalent illness of the 21st Century.

A film sequel to the book 'Lost Voices from a Hidden Illness'

Thank you Josh

Premieres at the Mill Valley Film Festival 2pm on 8th October 2011 Co Presented by the United Nations Association Film Festival