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ABDR/MyABDR privacy consent
form – MyABDR web site
Completing the form on the web site
1. Go to the web site - https://www.myabdr.blood.gov.au
2. Enter your email address and password to login as usual
HELP
T: 13 000 BLOOD (13 000 25663)
E: [email protected]
W: www.blood.gov.au/myabdr
Or contact Haemophilia Foundation Australia
T: 1800 807 173
E: [email protected]
www.haemophilia.org.au/myabdr
Step-by-Step Guide
3. Select a patient
3.1 MyABDR account for one patient:
If this MyABDR account is only for one patient (eg, you or your child), the ABDR/MyABDR
Privacy Collection Notice will be displayed at this point.
Go to step 4 for instructions on completing the consent form.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
2
Step-by-Step Guide
3.2 MyABDR account for two or more patients (eg, where you switch between
two or more children)
If you have a MyABDR account for two or more patients (eg, where you switch between
two or more children, or a parent and a child), your first screen will be SELECT A
PATIENT.
Choose one of the patients/children.
After selecting the patient/child, the ABDR/MyABDR Privacy Collection Notice will be
displayed.
Follow the instructions from step 4 to complete the consent form for this
patient/child.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
3
Step-by-Step Guide
If you select CONSENT for the first patient/child, you will be returned to the SELECT A
PATIENT screen.
You can now:


Select the second patient/child to complete the consent form for them as well
Or select the first patient/child and go on to record a treatment for them or product
for their inventory as usual.
You will need to complete a consent form for each patient/child. The consent form will be
displayed when you first select each patient/child.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
4
Step-by-Step Guide
4. Read the entire Privacy Collection Notice.
Make sure you continue to the bottom of the page.
This is an updated version of the Privacy Collection Notice you read when you first
registered for MyABDR.
The Australian national laws to protect your privacy have been made stronger.
As a result, at the end of this Notice you are now being asked formally if you consent or
agree to have your personal information in the ABDR.
You may also be asked to consent on behalf of your child if they are the patient at the HTC
and are under 18.
This is called an opt-in system.

It will make it clear whether you have agreed to have your personal information in
the ABDR.

You also have an opportunity to find out more about the ABDR and how your
personal information is used and protected
In the past it was an opt-out system – your personal information was kept in the ABDR
unless you asked for it not to be entered in the system. You may recall your Haemophilia
Treatment Centre talking to you about the ABDR and giving you a pamphlet.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
5
Step-by-Step Guide
5. Consenting
At the end of the Notice, you will see three (3) options for consent.
Option 1 – CONSENT
If you choose this option, it means you understand the Privacy Collection Notice and agree
to have your (or your child’s) personal data in the ABDR.
To select this option, click in the circle next to Consent and click on SAVE.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
6
Step-by-Step Guide
This message will appear:
If you click on OK, you will be
taken to the MyABDR home
screen where you can use
MyABDR as normal.
If you click on Cancel,
you will be taken back to
the Consent to Privacy
screen
Option 2 - Do Not Consent
This means you understand the Privacy Collection Notice and do not want your (or your
child’s) personal data in the ABDR.
Choosing this option will mean that the Haemophilia Treatment Centre (HTC) cannot enter
data about you (or your child, if they are the patient) in the ABDR. You will no longer be
able to use MyABDR.
A decision not to consent will not impact on treatment but your doctors and haemophilia
treatment team will need to make different arrangements to access your (or your child’s)
latest medical records. It would be valuable to discuss this with your HTC first before
choosing this option.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
7
Step-by-Step Guide
To select this option, click in the circle next to Do Not Consent and click on SAVE.
A message confirming your choice will appear, eg:
If you click on OK, you will be
taken to the MyABDR login
screen. You will no longer be
able to use MyABDR for this
patient (eg, you or your child).
If you click on Cancel,
you will be taken back to
the Consent to Privacy
screen
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
8
Step-by-Step Guide
Option 3 - Consent With Pseudonym
This means you understand the Privacy Collection Notice and agree to have your (or your
child’s) personal data in the ABDR, but under a different made-up name.
Choosing this option will send a message to the HTC requesting this option. You will need
to contact the HTC to see whether they are able to set up a pseudonym and still properly
manage your patient records. You will also need to discuss how this would work in
situations such as care in other hospitals or health care settings or in emergencies.
To select this option, click in the circle next to Consent With Pseudonym and click on
SAVE.
A message confirming your choice will appear, eg:
If you click on OK, you will be
taken to the MyABDR home
screen where you can use
MyABDR as usual
If you click on Cancel, you
will be taken back to the
Consent to Privacy screen
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
9
Step-by-Step Guide
Troubleshooting
What if I have already completed a printed ABDR/MyABDR Privacy Consent Form
at my HTC?
If you have already completed a printed Consent Form at your HTC, your HTC will register your
decision about consent in the ABDR at the HTC.
When your decision is registered in the ABDR, it will turn off the updated ABDR/MyABDR
Collection Notice page at login.

If you chose Consent or Consent with Pseudonym on the printed form, you will be able
to use MyABDR as usual.

If you chose Consent with Pseudonym on the printed form with the agreement of your
HTC, your HTC will organise for the patient name that appears on the MyABDR home page
after you login to be the same as your pseudonym.

If you chose Do Not Consent on the printed form, your login to MyABDR will no longer
work. You will not be able to enter data about the patient (you or your child) in MyABDR
and the HTC will not be able to enter data about you or your child, if they are the patient, in
the ABDR.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
10
Step-by-Step Guide
I have already completed a printed ABDR/MyABDR Privacy Consent Form at my
HTC, but the Privacy Collection Notice has still appeared when I login.
If there has been a delay between you completing the form and the HTC entering your decision
about consent in the ABDR, the Privacy Collection Notice will still appear when you login to
MyABDR.
In this case, you can complete the online consent form with the same decision as on your printed
form, and make a note that you have already completed a printed form in the COMMENT box.
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
11
Step-by-Step Guide
I have already completed a ABDR/MyABDR Privacy Consent Form. What do I do if I
change my mind later?
The ABDR and MyABDR are voluntary and you can choose to opt in or out at any time.
To change your ABDR and MyABDR consent status:

If you completed a consent form at your HTC, contact your HTC directly.

If you did not consent or consented with a pseudonym, contact your HTC directly.

If you completed your consent on MyABDR, you can change your privacy consent
status after you log into MyABDR on the web site version.
Go to DETAILS in the top menu
Select CHANGE PRIVACY CONSENT
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
12
Step-by-Step Guide
When you select CHANGE PRIVACY CONSENT, you will be presented with the PRIVACY
COLLECTION NOTICE.
Go to step 4 for instructions on completing the consent form. (page 4)
ABDR/MyABDR Privacy Consent Form – MyABDR web site January 2015
Helpdesk – call 13 000 BLOOD (13 000 25663) or email [email protected]
13