emilie: 19 years various medication

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emilie

emilie

Hi, i am french. I have been on multiple medication antidepressant and benzodizepine for 19 years (citalopram, effexor, deroxat, xanax, lysanxia, mirtazapine, perhaps others i don't remember for now).

Taking 2 years to slowly decreasing ml by ml.

The last treatment was mirtazapine, crushing pill and putting it in 100ml then waiting for 18minutes. Shaking and then slowly decreasing the part taken.

I have lost 20kg. My weight seem stable for the moment.

I come here to find if other have the same problem as i have for the moment.

Today is the first day i am totally free.

But i feel instable, fragile, very sensitive.

I was very sensitive to cold the last winter, it was very hard. The last period of crisis comes with impetigo. I have cracking joint perhaps because of loss of weight. I have difficulties standing straight. My position is my back is often vaulted, shoulders forward.

It seems i have never hunger. So i eat without hunger.

I have some months well. And suddently i pass month were each morning (when the sun goes down), i have sort of crisis. The typic crisis is that the sun goes down(sunset), it start with interior tremors, like waves and feel bad (sad or panic), and then diarrhea. Going to toilet to evacuate seem to calm the crisis. But it need after toilet you have nothing in the gut, all is gone in toilets. I can go to toilets multiple times before it calm.

I write here to know if others people have this sort of crisis when the sun goes down (sunset)?

I don't look at the sun, it comes inconsciently beeing outside(exterior of my home) or inside (in my home) is the same, like a clock inside the body that say "hey it is time to feel bad, a little tremor?"

Crisis comes earlier in winter than in summer. (sun goes down earlier in winter)

(For now, the sunset is 21:44 in my country. But symptoms often start between 19 and 20h).

When someone has been taking many drugs over many years they can be very sick from side effects and withdrawal. This is what will be happening to you.

Tapering for 2 years seems like a very long time but can still be too fast. I tapered one drug for a year and had withdrawal symptoms after being off for a month.

When we have the details of the drugs you have taken and how you tapered we will be able to help you. I am glad that you joined us, you are with friends who are all tapering or suffering the effects of the drugs so we understand.

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emilie

emilie

(My memory is not very good. But i remember when i was on effexor and mirtazapine, i had already this intern tremor and diarrhea at the sunset.)

you say "you are with friends who are all tapering or suffering the effects of the drugs so we understand. "

In fact i know that withdrawal can cause symptoms even in slow tappering.

But what i wonder is : are there other people on which the symptoms appears mainly at sunset?

Why sunset? The more the night comes after sunset, the more i goes calm.

It seem sunset time is important for me, i wonder if others people of the forum have this particular timing?

I feel like my gut flora was removed each sunset.

One time i had do 7 days fasting (to see if i will have hungry, but i had not hungry after 7 days of water) (fasting absitnence of all food, only water). It was a bad period and i had crisis at sunset (tremor and diarhea) before fasting, but while fasting, i feel better, no crisis at sunset. I eat after 7 days and the first day i eated, i had the crisis that come back at sunset.

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mammaP

mammaP

Thank you Emilie. It does look like you tapered too fast for your body to adjust. Often the last 1mg is the hardest. I stopped effexor at 1mg and had awful withdrawal.

It might be best for you to go back to 1mg and if it helps, keep taking that dose until you feel stable. The lower doses need to be smaller drops with longer holds between drops. Hopefully you will be able to stabilise with reinstatement. When you are stable you will be able to restart the taper. I took another 18 months to taper from the 1mg I reinstated. It can make a huge difference and help within a day or 2.

What time do you take your dose of mirtazapine? Maybe the gut problem is related to the dose.

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PoetJester

PoetJester

i have symptoms with the sun too, but they are different then yours. i stopped Zoloft and zyprexa cold turkey in 2014 and since then , when it is cloudy i feel physically weaker and have more panic/anxiety and feelings of doom. i am usually going without good sleep and on cloudy days, i feel like superman when he is away from the yellow sun- he loses his powers and superstrength (or what strength i have left after drug withdrawal). it's like when i am depressed from poor sleep, the sun at least gives me some strength and when it is obscured i feel less strong.

i also have the never feel hungry thing as well. i just eat after a certain amount of time, because i know i should eat. this has started the past year. my stomach has become bloated and i suffer from constant constipation as well. i think having very poor sleep is what is causing my stomach issues. i do have diarrhea often when i do manage to go to the bathroom.

poetjester

ps. did you have any side effects from the metronidazole treatment? i have been asking my doctor to prescribe metronidazole for me. i have developed horrible poop breath from drinking beer recently and i have read online that it may be caused by intestinal parasites or maybe a fungal infection and that metronidazole is one of the treatments for the poop breath.

I was not sure if it was real or not so i mesured my body temperature with a Forehead thermometer puting it in my front and in my palm hand to see. There is a real difference in temperature in palm hand between while crisis and after.

After having really cold, i often have too hot.

I have not the problem during the day, it come at the evening when i am in resting positionin a couch/sofa in front of TV for example.

If i am inactive it comes.

(For the moment, i put poultice of green clay and put it on my skin letting it for some hours. )

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Madeleine

Madeleine

If you have been OK 2 months, that is great! Maybe you are coming down with the flu? That's what happens to me sometimes when I am getting the flu, I am cold and can't warm up. Whatever the reason, eating something very warm and hardy, like a thick stew or soup helps me really warm up.. I also find it helpful to also drink plenty of warm teas, and rest. Hopefully you will feel better soon.

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emilie

emilie

i make 2 dishes per day. At 6h and 11h. i do not eat the afternoon for the moment.

In each dish i eat 50ml of vermicelli (rice or wheat) or a little of baby pot food (under 6 months). I avoid fibers and prefer rich water food. Sometimes i had one egg or a slice of ham or somes olives.

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emilie

emilie

Since i have stop all, each time i am ill, i have difficulties to support it, it destabilize me at an important point. Like exponential, it aggravates very quickly becoming totally weak and instable. Really hard. losing rapidly weight. (it will take months to re-gain this kilos)

it is to make the blood go in the brain to avoid fall when the crisis is here.

I can' t do this while i defecate

Doctor say too to try raising cardiac blood pressure before the problematic hour to test if it work. But i feel without energy (i have a low blood pressure and i does not eat many, because i am not hungry, and often after eating and even while i am eating, i feel bad (i think it is vagal too).

It is difficult to take care of me bacause i live alone. i would like to socialize for my mental. But the body does not follow.

Doctors say to make sport for my problems of osteopenia, my problems of breathing difficulties, to remake the body function.

But i don't know. It is like i have no muscle.

For psyllum i don't know. If i eat whole grain (fiber) it make me worse.

And fiber make you defecate more often, because more waste to evacuate, so it will make more crisis.

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