Latest Discussions

Recent Posts

Our mission at livingwithdysautonomia.org is to ensure that patients living with Dysautonomia, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. Recognized as …

What isLiving With Dysautonomia? livingwithdysautonomia.org is a dedicated patient-to-patient support community for patients and families affected by Dysautonomia. livingwithdysautonomia.org is powered by BensFriends.org, a group of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Dysautonomia. Who can join livingwithdysautonomia.org? If you or your family has been affected by Dysautonomia, consider LivingwithDysautonomia.org your second …

Treatment Treatment requires a multi-disciplinary approach which most often encompasses medical and pharmacological modalities as well as physical therapy, exercise therapy, and family caregiving/chronic illness/counseling. There is no magic pill or cure for these conditions. The recovery process will involve all of the above modalities along with determination from the patient, time for treatments to …