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Neurocutaneous Syndromes Clinic

(612) 813-7076
(612) 813-6360 (fax)

Children’s Hospitals and Clinics of Minnesota and Gillette Children’s Specialty Healthcare have joined to form the Neurocutaneous Syndromes Clinic Without Walls. This multidisciplinary team offers coordinated care to help families navigate the healthcare system and the often complex care management plan. Patients are seen at Children’s - St. Paul, Children’s – Minneapolis, and Gillette Children’s Specialty Healthcare.

Services

Diagnosis, treatment, care coordination, and long term follow-up services for families with children who may be affected by neurocutaneous syndromes

Genetic counseling

Genetic testing

Communication and collaboration with members of the child’s healthcare team, including primary care physicians

Assistance with school and insurance concerns

What are neurocutaneous syndromes?

Neurocutaneous syndromes are genetic conditions that are associated with skin abnormalities and neurological differences. Patients seen in this clinic are evaluated for accurate diagnosis and optimal medical management. Up-to-date recommendations are made for long-term care. Genetic testing and counseling is available. Families receive education about their child’s condition and patients receive comprehensive and coordinated care.

Some of the neurocutaneous syndromes seen by clinic providers include:

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Children's Hospitals and Clinics of Minnesota is registered as a 501(c)(3) non-profit organization. Contributions to the Children's Hospitals and Clinics of Minnesota are tax-deductible to the extent permitted by law. Our tax identification number is 41-1814223.