In February 2008 our lives took a turn in a different direction when our daughter Emily was diagnosed at 18 months, with a rare chromosome disorder called Chromosome 17q21.31 Microdeletion Syndrome. Now called Koolen-deVries Syndrome. ​ We decided to share our daughter Emily’s story here at Emily Ann's Kloset, so that other parents out there, would have something to read & inspire them when they sat down to Google their child’s new diagnosis. We hope you enjoy taking a look around our little corner of the web.