I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Monday, April 09, 2007

Day +30

Happy Easter everyone. Alivia had a great Easter. She saw the Easter bunny through the window yesterday and today saw him up close and in person in the hall. That's right Alivia has ventured into the hall. We have been officially "allowed" to go into the hall for a while now but she hasn't wanted to wear her mask (which had will have to wear outside for quite a while) but we were finally able to get it on her the other day. She cried until we opened the door and stepped into the hall and it was like a whole new world opened up. That was the first time she was really happy in a while. Since she seems to be having a bit more happy times. She is still out of sorts frequently but at least now we get to see her smile too. She got an Easter basket when she woke up and we did an egg hunt. When she spotted the first egg she squealed with delight and ran to it. Way to cute. She would hold each egg up to her ear and shake it to see if there was anything inside.

That's all the good news. Now for the less pleasent news. She is still "stooling" more than she should and it is still not a good consistancy (trying to be discreet). So they scheduled an endoscopy for Wednesday. She will go under sedation and they will put a scope into her colon and take biopsies and then into her stomach. Neither sound like fun to me. There is a high risk of bleeding due to low/poor functioning platelets. They want to do this to rule out GVHD. Originally it was going to be tomorrow but the doctor who ordered it was the doc who pushed for the NG tube so we decided to wait till Wednesday so we could get the opinion of the doc who comes on rotation tomorrow. He will probably agree but we want to make sure that everyone thinks this is a good idea before we proceed. Please pray that she doesn't have to have this test. pray that she doesn't have GVHD. Pray that she is able to feel better more and more often.

Sorry I've been so delinquent in commenting...but have read them all and continue to pray for each request. I'm praying God will provide another way to rule out GVHD and that Livi will be free of any other complications from this point on.

HAPPY EASTER TO ALL -- LITTLE DARLINGS LOVE EGG HUNTS AND IT SOUNDS LIKE YOUR HUNT WAS A GREAT SUCCESS :-}SO HAPPY TO HEAR ALIVIA WAS PERMITTED TO SEE THE BUNNY. THE HALLWAY IS A SMALL STEP TO GOING HOME. ALWAYS..PRAYING FOR ALIVIA..Phyllis

At church yesterday the pastor didn't have a typical Easter Sunday service, but focused on the powers of believing and having faith. There was one story and a particular verse that instantly made me think of you.... Jairus was among many who "welcomed" Jesus but Jairus was desperate for Jesus' help - because he had faith in what Jesus could do...he not only welcomed, but he "believed". Jairus' daugher was sick and in his desparation he knelt down before Jesus and told him of his daughter...

Luke 8:50

50Hearing this, Jesus said to Jairus, "Don't be afraid; just believe, and she will be healed."

Just wanted you to know you came to mind yesterday while the pastor was speaking...

Still praying. So glad that Alivia is having more happy moments. Thanks for taking the time to update us. Praying for things to come together at your house so that you can get home as soon as possible. That'd have to bring a smile to her little face. :)

Praying that all needs will be met and that you will be comforted. So good to hear about Livi's venturing forth - and that you could enjoy some normal-type Easter fun! May God continue to hold you all in His hands.Cathy S.

Your comments on Ian's post are so touching to me, because you intimately know suffering. I can't wait until Livi and Lydia can play together and we can all sit around and laugh with Ian again. (as if we've all even been in the same room at one time, but you know what i mean:)

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.