"After his recovery, he will then begin the long and hard rehabilitation process," Liam's mom, Amanda Hickey, said in a statement. "Little Liam will need to rebuild his muscles and learn to walk again."

Liam Hickey, 4, is one of two known cases of Opsismodysplasia in the United States.(Photo: Photo provided)

Liam's condition has led to major hardship for the Hickey family, the SVEYA fundraising team said in a news release. Amanda Hickey has taken an extended unpaid leave from her job and some of Liam's appointments last longer than a day trip, so they've had to spend nights in Rochester hotels to make sure Liam gets the care he needs.

There's no cure for Liam's condition, Amanda Hickey said, "all we can do is treat what arises."

That will likely mean more surgeries in the future. Now, the focus is on rebuilding Liam's muscles, and learning to walk again.