Paulette Le Pore Motzko’s Note to Pharmaceutical Companies on Placing People First and Nevada’s Unfair Treatment of People with Epilepsy, Civil Rights & Disabilities

I wish more pharmaceutical companies had more or a “Triple Win Attitude”: I Win, You Win & Society Wins. Huge multi million dollar companies need to keep ever present the real, flesh and blood people they are developing the drug to help.

They simply can function effectively as a business and still charge less for the consumer.

For instance, my medicine for epilepsy called Vimpat that I take is $20 a pill made by UCB. It cost nearly $2,300 a month along with my Tegretol that I take for a complex partial epilepsy. I have Nevada Medicaid and am on SSI, which allows you to make money and collect it, and pays less than SSDI-full disability. (it also took two and a half years to win with the aid of a social security disability lawyer too and I had to say goodbye to my alimony from the rocket scientist I was married to for 15 years to get that crappy $728 but my medical is covered.

Yet after stating all those facts, the state of Nevada doesn’t think anyone who was diagnosed with epilepsy has a medical conditiom or termed disabled, even though the director at the DMV told me I will automatically get a disabled placard when I update my Nevada state ID.

(I’m still trying to obtain a certified copy of my old marriage license to prove I’m Paulette Le Pore Motzko. That’s a $65 stupid document is so outrageous it is unbelievable. I’ve been divorced from him since 2001 and my name was legally changed in Garden Grove, California in 1986, when I got married. I’m going to go talk to one of my friends who is a librarian and see if she can get me the silly document free because $65 is a lot of money to prove I’m who I am! I’ve been trying to get that document 3 times now and it is difficult since my CA ID expired on my birthday last August.

Nevada needs to spend more time educating their politicalleaders about things like crime, humandignity, thepedestrianfatality rate and placingpenalties on drunkdrivers and their educatingRTC and people who are publicservants about variousdisabilities, NAMELY neurologicalones like EPILEPSY. That would use everybody’s time in an effort worth expending time on.

This may be Nevada and it may have the worstweather in the United States, and 60mileanhour-knock you on your assduststorms, highfraud rates, allergies that wont quit due to blowing dust, and vapes and casinos on every corner with fewnon–smokingareasotherthanStarbucks.

But Nevada is still only one state in the USA it stillistheUnitedStatesofAmerica. And as far as I’m concerned as far as I know, in the USA, we allhavecertain basic rights.

One of those rights is tobetreatedfairly.Denyingpeoplewithepilepsy the right to use Paratransit and having the head Federal representative not know what epilepsy even is is a crime.

That should be against the law and it probably is.

After after the grand negligence that happened to me regarding Paratransit and the callousness and apathy on behalf of Senator Harry Reid’s office is disgusting.

It doesn’t reflect great kindly on him. The irony is Harry Reid can barely see and uses Paratransit himself, so you think he’d be the first understand the meaning of a doctor’s letter when a doctor writes for a patient to take a medication and says you need it to live, which mine has done since age 9.

You think he would understand as well as the governor, how important it is to look after the safety of people with epilepsy and not allow them to be injured. I was.

I was talking to Harry Reid about raising the cost of living index to $1200 a month for all people on SSI and SSDI.

I still have pictures of the first place I lived in when I first moved here. That horrid $728 a month buys nothing in terms of living quality and your standard of life. All you have to do is think andcare and bearesponsibleperson realizethatalongwithall inflation and elevated prices going up,thecostoflivingindexforalldisabledpeople hasn’t been raised in over 20 years.

SSI is $200 less than what California has per month. Who created an SSI (supplementary Social Security) of $728 anyway? A monkey with an abacus? Everything needs to be updated to reflect 2017 prices. Make the minimum BE $1000 for God’s sake! Round it up. Turn the insulting, impoverished amount in to something a human being can really spend, not just make due in the real world. $1200 is actually usable and workable for the average person.

Anybody who thinks that SSI and SSDI checks are handed on a platter they are not you are sadly mistaken.

Image from Pinterest.

Lawyer Bill LaTour won my case in Southern California and I can’t count all of the doctors I went to and specialists and career counselors and all the questions I had to answer and psychological assessments in order to finally present my case. Most who are disabled would rather be working. In the final hearing all of the doctors and the career counselor appeared in a small courtroom and they’re the judge asked me what my name was and after about 5 minutes he reviewed all the evidence presented by every one of the doctors that I had to see you over the course of a year and a half before he finally awarded me ssi. That took a mere five minutes and those were the only words that I other than that.

You can’t sue the government but you can sue people who work for the government. And one by one I will if I don’t get my Paratransit FOR MYSELF AND SET A PRECIDENT FOR ALL WHO HAVE EPILEPSY IN THE STATE OF NEVADA.

After all, I’m the former President and founder of The Epilepsy Connection which was a grassroots organization in Orange County, California that helped countless people in California and many other states, and three other countries who had no other resources whatsoever. I’m also the former director of the Epilepsy Foundation sub affiliate in Garden Grove, California years ago.

In other words, I am a catalyst for positive change and I hope to merge forces with other disabled people making us stronger as a united team.

I’ve got arthritis in that leftankle that won’t go away, just as my dad was just about paralyzed in a wheelchair from osteoarthritis before he died several years ago.

After having a drop seizure- due to being out in 115 degree heat when I shouldn’t have been. That because I was having problems but two idiot’s went against my epileptologist’s letter stating that. I think that’s a crime isn’t it?

DAN HOWLAND AND JIM CHAMPOU, THE IDIOTS WHO DIDNT VALIDATE THAT DOCTOR’S LETTER AND THOUGHT DR. EVANGALISTA WROTE IT FOR THE FUN OF IT, INSTEAD TO PREVENT INJURY TO ME.

Maybe no lawyer in Nevada has wanted to take my case YET, IT IS A crime AND A double crime since Dan Howell and told me he didn’t care about people with epilepsy to my face and he said he didn’t care about learning about anything to do with them he liked being ignorant. After everything hits the fan and people pay the price they should have paid a couple years ago but I wasn’t any kind of health condition to be able to press charges, I hope he’s fired and not only that I hope charges are filed on him for endangerment and that is endangering me.

I believe the max I can do is $10,000 in the state of Nevada for him personally and also Jim shampoo $10,000 and also Tina Quigley, the head of RTC , who all she could say during our phone conversation was “uh huh” after I said anything. In other words, she did nothing and could have been forced my Paratransit ID once suck it but she did not. That’s another $10,000.

They put my life at risk because I was having drop seizures of time and that was written in the letter so that’s called personal injury and I with all the evidence that I can bring which is a hell of a lot of it I call it instant win.

It is the principle here. I am hoping I won’t need to and they will come to their senses. Maybe the Governor can hear the whole sordid story and make it right trade she seemed like the most level-headed person in the most articulate intelligent person I’ve seen hold office in Nevada so far.

I think Nevada has some disabled Senators who have disabled minds and need to greatly educate themselves about what all this abilities are an update themselves with 2017.

Civil rights and then do the educate themselves on disabilities that go far beyond physical ones in a wheelchair.

The statistics on disability is there are more people with invisible disabilities like epilepsy than those with more visible ones.

California was better with Paratransit by far. I had Paratransit in California over 25 years and I come to the 1800’s Wild West High Desert of Nevada and here they turn me down. I called Paratransit once waiting 2 hours and after the two hours the lady said, ” oh didn’t you know? Just because you call Paratransit doesn’t mean it’ll show up!”

Ignorance again.

You shouldn’t be a leader in the state if you are igorant in the ways I have seen. Dina Titus, Head of Transportation had no desire to help me get what I was owed as a disabled American citizen.

Nevada Medicaid pays for my medicine now and I hope it always does because it’s the best combination I have ever been on in my now 55 years young.

Even all that being said Senator Reid doesn’t think I have a disability-isn’the that rediculous?

I even sent Senator Reid pictures of my medicine and all the vitamins that I take and the doctor’s letter from my specialist who prescribes my medicine and the copy of my medical ID bracelet and he still didn’t think that I was disabled!

Living in Nevada is like living in the wild west where they think they can do anything. The American with Disabilities Act is something that I know all about and because I was turned down for Paratransit here I could sue every senator in the entire State and when because my civil rights were violated and I broke my left ankle as a result of having a drop seizure a year ago and was nearly in power chair after! Was I disabled enough for you then Nevada huh 7 read the governor ? Is that what you want to but everybody Wheelchairs and that’s the only kind of stability you think exist in this world ? Wake up you need to get your head examined and go look at the medical book and read it all of this abilities that exist in this world there quite a lot of them we have a lot of components to our bodies not just a physical body without your neurological system you’re nothing you can’t write you can’t speak you can’t do anything.

I now have arthritis in that left ankle, which makes might a personal injury case that I didn’t want come into the state I just wanted a place to live it was cheap that’s it I didn’t come here for the gambling I don’t drink I don’t smoke I don’t do drugs and I don’t gamble why did I come here for cheap rent that’s it hat’s part of living in Nevada is not something I like but it’s also against my civil rights too.

I’ll be talking to the governor of Nevada this year about all of those issues as well as others that affect everyone or just same old and about raising the cost of living index for all people who are disabled to something that allows them to live in dignity, which the $728 a month does not.

I want to see that all people can afford tm what they need to keep them alive.

Hear that pharmaceutical companies?

Remember the human element.

Remember why you’re developing the medicine in the first place.

What good is a fantastic medicine with a high efficiency rate and the low side effect rate and a huge success rate if the patients cannot afford it? I’m asking you that question mark I was made a rocket scientist for 15 years and I’m fairly bright that’s not even logical is it to make the price outlandish.

If drugs are so outrageously priced limiting who can take them, it defeats the purpose why the drug was ever created.

I wish the scientist who developed the drugs could price the drugs because then they would be priced at something reasonable that makes sense.

Because people who are scientists creating these compounds to help people would never charge people outrageous prices because they’re more humanitarian in spirit than the simply sales reps promoting the products getting huge commissions driving company cars!

Let the pharmacology medicine developers help set a price that is more accurate.

I saw pharmaceutical reps every time I went into one of my neurology offices in Orange off La Veta when I was married years ago. I think what they do should be against the law because they’re giving doctors Kickbacks to promote drugs. because of that, doctors are not looking at to the best needs of the patient. The Pharmaceutical reps are allowed to dangle money in front of a doctor’s faces and saying over here I’ll give you this money -a bribe.

How in the hell can a good doctor think straight with the ” Wheeler Dealers” walking around dangling incentives.

Pharmaceutical companies remind me of real estate companies in California. Everybody is so greedy that they have to make “over profit” aking for way more than is affordable for most everyone except millionaires.

Medicine companies: Remember the people FIRST. Without people in this world you have nothing. Nothing but dust and a bunch of chemicals a test tube that people NEED.

Written by Paulette Motzko on April 5th 2017 at 12:48 p.m.

This is story was aired on Totally Inspired Mind: Where Posititive Minds Congregate and Beautiful Soul Shine.

TotallyInspiredMind.com

I created the following document on my Galaxy Note 4 Phablet and the edits are coming in on my Samsung S2 tablet. My phablet overheated just like I do when I even think about the things that I’ve been through for no good reason. I almost was history in this town so rather than be history I’m going to make history instead, making it better for everyone.

Hooray! Finally Obama says exactly what I have been writing and saying all week.

I hope this is the first step to taking very very strict action of for the first time in history deeming someone unfit to be the president of United States.

It’s not a free chair. You have to earn that chair was there ever a very well-thought-out word you say that shows what kind of person that you are. People aren’t hiring a name to be the president they’re hiring a human being with values.

If you’ve proven that you’ve alienated every type of minority there is, including women , which for the most part in this world are still a minority, and you’ve insulted even your Republican teammates-what’s coming for us as a nation with Trump as dictator?
Doesn’t take a rocket scientist like my ex-husband to figure that out!

Trump would not be a leader. He would be a dictator just like Hitler was and I know it. In my heart of hearts I know that. When you’ve lived over five decades you develop insights, wisdom and have an inner voice and intuition about things. If you really listen to it, you will be dead-on right about everything.

There’s a difference between a leader and a dictator. A true leader is a Visionary. A leader can bring out the best in everyone and see they’re true hidden potential, even when they can’t even see it themselves.
A true leader hopes to work in a synergistic fashion with other leaders, and not compete but work with them creating a triple win which is- I win, you win, Society wins at large. I learned that philosophy what I was in the Voluntary Leadership Program at Chapman University where I graduated in 1997 the top of my class. I’m very proud of that because it started with a vision, and an extraordinary idea and it ended with reality.

Trump would be a dictator and we would smash everything and everybody that’s in his way. He would look at people as obstacles and he would not behave in an ethical fashion. Trump’s fashion would go against everything that America stands for. We would all be subservient to him.

I was married to a real rocket scientist for 15 years and much of his logical thinking rubbed off on me. In the best of timed my ex-husband and I got along really well because we were both could discuss any topic there was in the world. Even though I was disabled my ex-husband didn’t care because he saw my abilities and he saw what I could do.

In 2016 we as a nation have become a very sophisticated people. We could work out almost anything we would ever want to work out with any country there is- if we only wanted to . We have to want to more than anything in the world though.

In order to pave New Roads to a more promising future for all of us in the United States. We need to elect a president who is an excellent speaker and who can articulate all of our wishes as a unified people. Our president must be an excellent communicator. Trump is the opposite of that. He’s the polar opposite of an articulate communicator. Trump is a triple loser. The only element he comprehends is domination at any cost. All of a sudden the triple winning scenario goes out the window and what you’re left with is Trump wins, Trump wins, and society loses.

One of the things I’ve always wanted to do is be a speech writer or a writer for a politician I endorsed or The United Nations to help unite us as a world. With very carefully chosen words we can avoid war and create positive Alliances. We could work towards a more promising future it. It just takes work and silence and thought.
It means you have to sit down and you have to be in a quiet room and you have to have no TV blaring and you have to just think.

Changing the subject but still on the train of thought of equality and civil rights:

I haven’t had a TV in over 3 years due to the state of Nevada lowering my SSI check over $250 a month, and I am on a payment plan with NV Energy to keep my electric on!
That’s not living in dignity and far from it. I gave up alimony for this just to have my medical covered?

People who collect subsidized income would rather be working, and most of all have good health. They would also like to not be discriminated against because of their disabilities and appreciated for whatever intelligence, abilities, and skills they possess. In the real world that’s not how it works. I was given a 50,000 year job by Edison in California then when they heard that I use Paratransit Access they said “oh we won’t be needing you!” I swear to God that happened. I have seen it time and time again so maybe some people like to sit around eating bon-bons all day watching a TV set but that just ain’t me! I placed education first and I want to be hired for my abilities and paid accordingly. Once I get Paratransit I will be able to make more money and be able to make it get to jobs faster and not in debilitating 115 degree heat.
It’s counterproductive to anything that I’m trying to do in this state.

This story will be given to Senator Harry Reid and one of the local newspapers here.

I say it like it is and I’m not ashamed to say that. People respect me for that.
They expect me to make $14,000 a year on top of the joke of a monthly check of $728 and collect the below poverty wage figure. Sure SSA. You try and earn a living with half the people you deal with are drug addicts, drunks, or just flakes. I am in the process of raising the cost of living index for all people on SSI, SSDI veterans and all people who are disabled who are affected. Inflation increased but the cost of living index for all the disabled people who rely on that for life and survival. It has not been raised in over 20 years. Not cool and it’s about time. Whoever created the figure $728 needs their head examined. That doesn’t even cover the rent. doesn’t cover rent and utilities. I’m in the process of meeting with Senator Harry Reid and I think I will be the first Disability Advocate Nevada has ever had.
I want to see that all people who are disabled live in dignity.

After all, I should know about civil rights I had my freedom taken away from me moving to Nevada. They told me that level if he’s not a disability it’s not worth Paratransit you’re not disabled enough that’s what I said that’s what they said amazing isn’t it illegal to cancel or specially when they denied my doctor’s letter stating I needed Paratransit and I haven’t driven for over 25 years to do it almost being killed in a car accident; they turned me down. Makes no sense. It’s called ignorance and stupidity. That ignorance and stupidity cost me a broken ankle and toes and one year later I now have arthritis and then ankle. 3 people were involved with that moronic decision to play God and ignore a neurologists doctor’s order stating that I had heat-sensitive epilepsy and I’ve had Paratransit for 25 years in the state of California with Access. Those people will be sued in civil court at a minimum of $10,000 a piece by me because I suffered because they were stupid and arrogant and the worst part apathetic and callous they didn’t care if I got injured or not but I did.

I will go down in history as being the first disabled white woman who came to a dust bowl of a town to live and dignity and peace and instead got didn’t find that.

Nevada is the worst state for disabled people in the world. If you’re disabled don’t come to Nevada. I will say that over and over-don’t come to Nevada if your disabled- especially if you have Mobility impairments because there are tons of people who should be in special homes they should have a personal care attendant with them and they don’t.
Yesterday I fed and helped a totally blind man who was walking the streets feeling this way the whole way with a cane and he could barely get inside the Jack in the Box that I happen to be at.

When I was on the phone with my friend I looked up at him and he went to my table and asked for two more quarters because he almost had enough to get a hamburger. This was a veteran who served in the military and because of a bomb he had one of his eyes blown out and the other one with glaucoma! It makes me sick how America treats our military in this country and I want to see that change. The Veterans Administration did a lousy job taking care of my dad when he was alive and obviously is doing a lousy job on the totally blind veteran walking the busy streets with a cane. I do good walking around this state and I have eyes and I can see!

Cars will kill you in this town and they don’t care that you have the right away because no one makes anybody accountable. That’s the problem with Nevada is life is not sacred, disabled people don’t matter here as with the ADA laws of CA. That’s why they’re so many pedestrian fatalities-ALL because the people who run This Dusty Hot Town seem to think it’s okay.
It’s not okay. Manslaughter will never be LEGAL and life is sacred and a car will always win against a frail human body.

I stopped what I was doing and I was horrified when I saw this veteran, of which I know is full name, when just might go to the Veterans Administration myself and say what are you doing for this poor guy? Find out who is case worker is and chastise the crap out of them! As imperfect to Southern California is, if THAT BLIND GUY were walking the streets, feeling his way with a cane, nearly getting killed by hundreds of cars, a police officer would pull over and find out where the guy is and find out where I lived and find out who his case worker is that they would care there’s not a whole lot of that here in Nevada. They don’t tell you all that stuff when I Nevada tourism guide!

He would have a counselor with the Braille Institute, he would have probably housing it was very good because he has a total disability , that’s what I have but I’m not getting full SSDI for it it’s called the disability that never goes away-like mine which is epilepsy.

He should have someone helping him a PCA, just like what I used to have until moving to the wild west where everybody fends for themselves and people just watch it all and few help.

I should have all the benefits of a blind guy has anybody and both of us should know that where ever we go we are driven by a driver.

The Federal Government needs to rethink the way they allocate the payments people get for SSDI and SSI shouldn’t play God. All should be treated the same.

Nobody has the right to declare that one disability is better than the other or gets more money than the other. What staff in the heavenly court dictates that? I’ll take pictures of all my medicine that I take during the coarse of a week and have to swallow in the morning so I don’t go to the hospital. I will educate all of them because obviously RTC as a company, the Paratransit division, Senator Reid, and Titus are all in the Dark Ages where epilepsy is concerned. At this very moment August 2nd , 2016 epilepsy is not recognized as a disability in the state of Nevada. WOULD I have come to this cockeyed, dumb state knowing that I would be discriminated against? WOULD I have spent $1,000 moving all my furniture from one state to another, becoming a Nevada state resident, losing all my Medicaid benefits in California when I did that, and then living like this? I don’t think so nobody would their right mind and it’s wrong .
The Paratransit director Jim Howland told me to my face he didn’t care about people who had epilepsy because he didn’t have to care. Caring about the people he served was not a prerequisite of working and feeling his job. Can you believe he would have the audacity to say such a stupid thing yes he did. I want him fired and replaced by someone who was compassionate and kind and caring and understands about all disabilities not just physical disabilities but neurological disabilities like mine that’s what epilepsy is how about other ones physical ones all disabilities don’t put an imp somebody the equivalent of a chimpanzee behind a desk Who’s acting as God to everybody turning him down when he doesn’t even know what he’s doing when his decisions have bad implications on the people he’s doing it on like mine did. He made the decision to allow me to be injured and put me at risk and that was a bad decision as well as Jim Champou and Tina Quigley.

Me and the blind veteran are mote alike than observers would guess. I fed him and he ate and that was good but he needed way more than I could give. I felt bad that I couldn’t do more.
I’m not a social worker I’m just a person on a limited income trying to make a difference in a two-bit town that it seems that the going rate in Nevada is they just don’t care.

Dina Titus didn’t care that I didn’t have my Paratransit ID. I met with her office and I had to drop seizure in her parking lot. My left knee got all ripped up and bloody and I have pictures of it to show pictures of it to show Senator Harry Reid , along with with some shocking photos of what my first studio looked like here-that’s what $728 buys!
A picture speaks a thousand words. You can say things until you’re blue in the face and people just don’t get it. You show a picture of something and all of a sudden people wake up out of their stupor and it becomes real. To see up close and personal how people live.

Not one of Dina Titus’s advisors came out and even asked me am I alright.
Apathy seems to be Nevada’s creed. Apathy towards the dead pedestrians who get pummeled daily by drunk, preoccupied drivers who aren’t paying attention to the road and you’re not paying attention to stop signs, red lights and do not know the word yield. I’m a pedestrian and there’s lots of other people who are too.
Senator Reid needs Paratransit if he can barely see and relies on a personal care attendant which I should have like I had in California for 25 years and a driver like I had for over 25 years in California. That right there should not require a test at all should have wished it? There should have been no test for me whatsoever for Paratransit especially when the test is not only test for mobility issues that’s all it does. Most disabilities are invisible and are not Mobility related so going off on a tangent here with my particular situation and I’m fighting for but it’s not everyday you meet with a Federal representative.

No TV set, no cable, no cable bill either. All the news that I get is on average about 200 different apps that are on my Galaxy Note 4 and they’re programmed for headline news so immediately when the news comes out I get it. Twitter it’s also great for finding out what’s going on in the world as well as Facebook.

I get it on Headline News, I get it on CNN I get on Las Vegas Review-Journal sometimes I go to CBS News because I like their correspondence and I think they do a good job of covering stories.

We can take our nation anywhere we wanted to go but we have to think about the future and not just be selfish.

I wrote Mr. Khizr Khan on Facebook and asked him if we could petition or do some kind of proactive action that would deem Donald Trump as unfit to hold the position of the president of the United States of America. Many people may not know this but he’s an attorney who graduated from Stanford University. Khizr Khan is a very eloquent, hard-working American Muslim who earned every cent he’s getting and who, even though he was verbally attacked by Donald Trump, managed to speak in an eloquent way and choose his words ever so precisely. I commend him and I told him that in an email and a private message.

We need to increase more positive ways that we can communicate with one another rather than blowing each other up and watching the body parts fly of all the innocent people who die just to kill one person.
War just like Trump is a triple loss now and in the future. Let’s avoid both!