I to am on Humira, and have been since May 5, 2008. I have started to have joint pain in my hands and upper arms which occurs the day after my shot. I am going to my GI next week, as this could be Humira induced lupus. I experienced the same thing with Remicade, and it got progressively worse with each treatment. It will evenually go away (for me 1 1/2 years). The only thing that helped was prednisone and MTX. It might not hurt to keep track of your symptoms on a calender to show your Dr..

I am very fatigued most of the time...constant plugged ears....and I have gained about 14 pounds since being on Humira over the past two years. I am so frustrated with the weight gain!! I am very small and have always had a flat stomach. This weight gain has caused me to have really bad lower back pain. The other frustration, everyone always says how much healthier I look. When inside, I don't feel that way. Good Luck!

LisaLee37 said...I am very fatigued most of the time...constant plugged ears....and I have gained about 14 pounds since being on Humira over the past two years. I am so frustrated with the weight gain!! I am very small and have always had a flat stomach. This weight gain has caused me to have really bad lower back pain. The other frustration, everyone always says how much healthier I look. When inside, I don't feel that way. Good Luck!

Interesting. Is your lifestyle, eating habits pretty much the same as before? It seems like I have to work extra hard to try not and overeat. I used to be able to be "good" for most of the week food wise and maintain the weight I wanted. Now it seems like I have slowly crept up from 210 to 218 and cant maintain easily.

I am 5 feet and my normal weight before Crohn's was always around 103-106. I was officially diagosed with Crohn's in 2000 and have dropped down to 89 pounds many times.

I now weigh in at close to 120. I know this isn't a lot for most people....but keep in mind my height and I am small boned. My eating habits are the same as before. I eat pretty healthy. The only day I blow it, is the day of my injections. For some reason I eat like a pig! I never even gained this much weight on prednisone. When I was on Remicade this happened to me too. I was only on it though for 1 1/2 years before getting lupus, so I never gained as much as I have with Humira.