Wednesday, April 9, 2008

After yesterday's Magic Kingdom marathon, we decided we needed a day of R&R at the Village. Jessie just does not have the stamina anymore - but what a trooper, she hung in there as best she could yesterday. We all slept in this morning and let Jessie decide what we were going to do today - she chose swimming, taking a nap (we took 2!), and eat ice cream. We are staying at the best place for all 3.

Today Jessie made her wish star and sent it to the Star Fairy in the Magic Castle. Tomorrow we will receive a special letter telling us where to find it in the castle. All 4 kids got to make special pillows too!

Tonight is Kids Night Out - Mom and Dad got to have dinner on our own while the kids play with volunteers, eat a special pizza dinner and go to the Village Idol show. We decided to take advantage of the time and catch up here and then we'll catch the V.I. show before we pick up the kids.

Also tonight the kiddos will get a special treat - we'll not spoil the surprise . . . you will have to wait until tomorrow to find out!

About Me

Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain)
This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008.
This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before.
Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.