Hi everyone. My husband was due to go in for a stem cell transplant this week but it has been delayed as he wasn't well on the day. Due to a theatre being unavailable for the donor (for taking cells from bone marrow), it's been put back two weeks.

This means my husband will now be off Ibrutinib for 18 days. Am very worried about this. He is in remission but I wonder what effect 18 days without Ibrutinib is going to have. The glands under his arms have already come up. His doctor assures us that's it's not a problem to go off Ibrutinib for this period. Has anyone been in similar situation?

I stopped taking Ibrutinib for 10 days after being on it for 3 months. All my lymph nodes swelled up alarmingly after about 3 days, but within a few days of resuming Ibrutinib, the nodes all went down again and now I wouldn't know I ever had them. I wish you and your husband well.

hello, i missed this when it was first posted. my husband is now over 100 days from HSCT, after 5 months in ibrutinib got him in shape for it. so far so good, he may still feel crappy a lot of the time from the drugs, but if you look back a couple of weeks you can see improvement. and the tests show the transplant has "taken". recovery is a very long very slow process. we wish you and your husband the very best.