​Who can be referred to the ALS Clinic?

We see patients with any form of motor neuron disease. ALS is the most common disease seen in clinic, but we also follow many patients with other diseases including Spinal Bulbar Muscular Atrophy (Kennedy's Disease), Spinal Muscaular Atrophy (SMA), and variants of ALS/MND. We see patients at any stage of the disease from diagnosis confirmation to late stage management. Referrals to the ALS Clinic must come from a medical professional.

What to expect at your clinic visit

During your clinic visit you will see a number of health care providers depending on your needs. The list of potential providers you may see includes Neurology, Physical Medicine & Rehabilitation, Respirology, Speech Language Pathology (for speech and swallow), Physical Therapy, Respiratory Therapy, and Chest Physiotherapy to address breathing concerns. Additional specialists and services will be added in time.

Your clinic visit may take a few hours. We understand that our clinic's appointment times will be necessarily lengthy, but we do hope that the consolidation of services results in fewer appointments you must travel to overall.

Please ensure that you bring a list of current medications and their dosages. If you use non-invasive ventilation (ie. Bipap) we ask that you please bring your machine and mask.

In the past we have found that both patients and ALS/MND team members have benefitted when a family member or friend accompanies clients to help gather information.

Who is the ALS Team?

The ALS Clinic consists of a team of healthcare professionals who have both a special interest and expertise in providing care for persons with ALS/Motor Neuron Disease.

Research

There are several research projects underway at the ALS Clinic. Please contact the clinic for a current list of projects.

Examples of a few projects include:

Affiliation with the Canadian Neuromuscular Disease Registry. All persons with ALS/Motor Neuron Disease are invited to participate.

Blood collection in SBMA (Kennedy's Disease)

Telephone interviews in ALS regarding access to resources

How to Contact Us:

Please direct questions to our Clinical Coordinator, Raelyn, who is available Monday to Friday, 08:00 - 16:30 at 306-655-7742. The role of the clinic coordinator is to make it as easy as possible for patients and their families. She will coordinate referrals to clinics, schedule appointments, and provide feedback to the ALS/MND team.