The Journey of Beckett Jude Rupp

August 4, 2013

UPDATE (8/4/13)

Beckett has been in a great mood today. He really has a surprising amount of endurance when it comes to him playing in his bed. Just think what it’ll be like when he’s runnin’ around! However, with that energy there is always the inevitable “running out of gas”. Well, these events have typically been ending bad these past few days (maybe weeks). However, we caught it this afternoon. When it finally came for him to sleep (you can just tell when he’s “done”), he just fought and fought and fought. But before it got out of control, he somehow settled down and fell asleep (and has been sleeping for a while now).

I posted on Facebook earlier today that I finally feel like I have the time to do some “summer reading”. So I spent the afternoon reading a lil and just relaxing (in Beckett’s hospital room). We did have some NICU nurses visit again (which is always a welcomed treat), but I told them that as much as we enjoy seeing them, that in the near future we are going to have to welcome them to our house….cause that is where I am hoping and fully expecting to be (again) soon. On that note: if I had to guess (at this rate), we probably won’t be home for at least another week; that’s disheartening, but at least it’s better than a month!

Leah had to work once again today, but will be back again tomorrow. She’s so amazing. I applaud her tenacity to keep working, as I know she is truly doing it for us…her family. I cannot wait for the day to relieve her of the stress of “needing” to work like she is. She still may work, but I’m ready to get back to working full-time again….but all in due time. Didn’t I just post recently something about staying present in our current situation? 😉 Yeah….an everyday battle! One day at a time.