Monday, March 31, 2014

Sunday, March 16, 2014

Living with IA is like falling in a deep well. You struggle to get a little farther up from rock bottom, and for some unknown reason you hit the bottom again. It is hardest mentally when you have had a little time to think you are almost at the top and then you fall right back to the bottom again.

IA could be compared to being stuck living as a character in a video game too. LOL Imagine seeing if you can stop your man's face from swelling, his body becoming covered in a rash, his turning blue, his tongue swelling so much it sticks out his mouth etc. Oh - and don't forget the lovely urinary incontinence, vomiting and diarrhea. Getting an Epipen would be getting a new life.

Scott was back in the hospital for 8 days in January. He had a perforated colon and abdominal abscess. They were able to get the infection cleared up and they are trying to get his Crohn's settled down so they can go in and remove the bad section of the colon. They will remove the sigmoid area this time. He had his ascending colon removed in 2004. He is now on three drugs for Crohn's, including Humira.

As always, we are very grateful to my family and our friends who helped us get through the trials of January. Anything from bringing me a peach tea to helping me carry things to the car, taking me to lunch, taking care of Carmen, money, and thoughts and prayers are so appreciated.

Since the last update, we have a new grandson. Finn Palmer Harris arrived on February 5th. He is very healthy and growing fast.

I was able to spend two weeks spoiling the boys. The make me so happy. Being their "Mammae" is the best thing I have ever done in my life. Hearing Bentley's little voice saying, "Love you Mammae.", makes the darkest day bright.

Friday, August 23, 2013

Sorry - I really haven't been able to write a thing earlier than today.

Scott is still sick but improving.

There was no cancer in my biopsy but also nothing to help my other health problems. I did OK post op for a couple of days then took a downturn. I finally came home yesterday and feel a touch better, but have a new problem that I am going to have to deal with soon.

We are resting and able to get ourselves food - at least food we can eat - which is very limited right now.

Thanks to all who were concerned and I am very sorry that I wasn't able to let you know sooner.

Wednesday, August 14, 2013

At this time tomorrow, I will be getting ready to go to surgery. I am not as nervous as I thought I would be.

Scott has been in the hospital since August 3rd with a bad Crohn's disease flare-up. We thought he was going to end up with surgery but he made it. His small bowel was blocked from all the swelling. He is finally on a regular diet, and they are discontinuing his TPN (total parenteral nutrition) today. He had nothing by mouth for over a week. He may be discharged in time for my admission.

I was afraid Scott would have surgery and I wouldn't be able to care for him. He is determined to get well to care for me. We may disagree a lot but there are very few relationships as close as ours.

Bentley has finally given me a name. We tried to get him to say names we wanted but he just couldn't say them. Yesterday he started calling me Mammae (mam mae). It is wonderful for him to finally be saying "my name".