Tuesday, July 28, 2009

Now don't worry. I am not going to deprive my sweet baby jello goodness just

because his mom has a weird dislike for it.

See. I made him Cherry. The number 1 jello flavor.

Gotta love this face...

Ut Oh...

Oh man...

"Mom whatever that was. DO NOT do it again."

Point taken little man, point taken.

You may be daddy's spitting image but, you got your momma in there too.

To say this made me smile is an understatement.

Want to know something else that makes me smile?

Physical Therapy. You heard me right.

The very thing I cursed last week and gave me an awful stomach ache the closer I got today. Made me smile. Jackson got a new physical therapist today and she was amazing. Her approach was completely different and it was wonderful. There was a good 20 minutes that he forgot he wasn't next to me. He laughed and we got a lot of great information and some new stretches and games to play. This is such a relief I didn't know how we were going to get through it after last week. I can once again say I am excited to see where it takes us.

Please say a prayer for Sweet Baby Stellan. He isn't doing well again. His little heart is fighting like crazy. You can click his button to the right and read up on his story. We are asking for a miracle.

Saturday, July 11, 2009

We have upgraded from the finger rubber toothbrush to Jackson's first big boy tooth brush. He loves to brush his teeth with it. I had mom Flip him while I brushed them this afternoon (sorry for the sideways video, thanks mom ;) )

Tuesday, July 7, 2009

We had our initial consult at The CHOA Scottish Rite Location this morning. I have to admit I was a little nervous going into it. All in all it went great. I almost *almost* lost it only once and I thought that was good. :) Our PT was wonderful. Super sweet and answered all of our questions. At the end of the evaluation (that lasted 2 1/2hrs) she gave J his score on the scale they have. 10-12 is average and he is functioning (for his gross motor skills) at a 2. I was a little surprised at how low it was, but when she started going over things he "should" do I realized her assessment was more than fair. (That's when I *almost lost it). The part that they actually did the physical therapy with him a lot of tears were shed. She reassured us that none of the exercises hurt him, that he was just out of his comfort zone and upset. I could tell by his cry that was true. It was more mad and frustrated. She said this usually lasts the first month or so then they get more comfortable. So all in all it was a success. We will go once a week for an hour session and do workouts at home. Then when BCW starts we will add another PT session in the home also (they take up to 45 days to initially contact you). It looks like we are at a great place to catch up and it will be work for Jackson but, we know he is up to the challenge. Our PT today thought that in 3-4 months we should be up to speed. We will meet the PT we will work with throughout Jackson's therapy next week. So say some prayers for our little man. I know this journey is one we need to embark on. I just hate to make him upset and cry he is such a happy man. I don't ever want anything to break his sweet spirit. I guess this will be the first time since he was born we as parents will have to do something he may not like for his own good. I'm sure not the last.

Sunday, July 5, 2009

We had an amazing 4th weekend. I hope you all did too! Daddy got off work early on Friday and played some golf so Mommy and Bub's had a date at Cracker Barrel. He loved it so much and I am a sucker for veggies drenched in butter (lol) . Seriously he ate more off my plate than I did. :) He is a growing boy after all. Saturday we headed out to the lake. We played all day it was so much fun. Jackson was very interested and a little afraid of the fireworks show but, he couldn't look away. It was so cute. Then to top the amazing weekend off. It was Stephanie's birthday today (Her 6th anniversary of her 29th birthday) so we headed up to their house and had a cookout with them. Jackson made a new friend, Miss Mia. She is gorgeous. We had to leave a little early, little man got tired from the full weekend. It was a busy busy weekend but oh so worth it. Enjoy the pictures. :)