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Sarah Pritchard, founder of The Benjamin Pritchard Foundation – Be More Ben. says : “From personal experience, following Ben’s death, there was little help and advice available for parent whose child has died – even less for siblings and none for other family members.

"To lose a child and feel there is no help or support available to you is frightening and leaves you feeling isolated and vulnerable.

"To this end, we set up The Benjamin Pritchard Foundation – Be More Ben, through which we aim to enhance bereavement support and services for parents, families and siblings who have also lost a child at a tender age."

Ben Pritchard with mum Sarah dad Shane and sister Freya

"Thanks to Aberdeen Standard Investments Charitable Foundation, these families have the opportunity to build support networks with others who completely understand what losing a child is like.

"It will also benefit siblings, enabling them to have fun, make friends and do something which is just for them because having an ill brother or sister takes priority over everything else."