Debbie and Ron talk about the experiences of their 8 year old son Dylan with Type II SMA

Debbie and Ron talk about the experiences of their 8 year old son Dylan with Type II SMA

Living with SMA

The severity of Spinal Muscular Atrophy (SMA) symptoms varies – some people can move, eat and speak more easily than others. Importantly, children with SMA have normal intellectual and emotional development.

Disease Progression

People with SMA either never acquire, or progressively lose, the ability to walk, stand, sit and even move. The severity and rate of disease progression varies greatly depending on SMA type.

Dr. De Vivo describes the disease progression for different SMA types

Esther and Frank describe their daughter’s progression since diagnosis

Debbie and Ron talk about the experiences of their son with Type II SMA

Steve reflects on his experiences with SMA during his childhood

James talks about his family’s experience grieving for his son, Leo

Day to Day Life

SMA can affect all aspects of daily life, including routines, school, sports and careers. Children with SMA, and their siblings, also develop an understanding of the condition.

A typical day in the life of 2 year old Maeve

Ron and Debbie describe Dylan's daily routine

Steve talks about life with mild SMA, from high school, to college, to his law career