2011 -- CJDF initiates Family Workshops which continue to be held around the country.

2015 -- The organization hosts its first-ever Strides For CJD fun run/walk event in nine locations throughout the United States.

2015 -- CJD Foundation hosts its first monthly Teleconference Support Group call. These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another.