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It is with a heavy heart that we tell you all that our dear staff member Tonibunny, who was with SSo from the start and was a good friend to many here, passed away Thursday night.

She was a wonderful friend to many members of the site. She readily shared all her knowledge and experience of scoliosis and was always willing to help and encourage anyone who reached out to her. When she wasn't sharing her experience of scoliosis, she shared her love of books, art, and music. She had a love of learning and life that was infectious.

Re: What to take to hospital - suggestions please!

Can I add a sleeping bag for the mummy or daddy who is staying, i was so cold for two nights and my sister turned up with a sleeping bag and it was great at keeping me warm, rolled up small during the day and works so much better than one of the little hospital blankets.

Re: What to take to hospital - suggestions please!

Hi, I am exhausted by just reading about what to take with us for Monday's surgery, let alone the packing - I haven't even started. I don't know how long we will be there so was thinking about turning up with a huge suitcase full of stuff but luckily we live 20min walk from GOSH or one bus ride so can always go home for more.
I don't know if they will put Jessie into ICU due to the nature of the surgery but if yes, how does it work? Where do the parents stay? I want to be with her but I guess parents are not allowed to stay there, are they?
Thanks,
Stana

Re: What to take to hospital - suggestions please!

I'm guessing the patient hotel which is opposite the hospital. I suggest you phone Edel and ask. I will pm you her phone number/email. X

Mum to Maddy aged 14. Maddy is a patient at Great Ormond Street Hospital and had a growth rod inserted in November 2007. In March 2011 the growth rod was removed because the curve became too strong. In May 2011 Maddy had anterior release, 2 weeks traction on a Stryker Frame and then spinal fusion.

Re: What to take to hospital - suggestions please!

Hi,
Just wanted to add to the list. I am definitely taking good quality tea and coffee with me in the hospital as the cheap hospital one makes me sick especially when I have lots of it and I need lots of it when I am in the hospital.
I am also taking my own mug, Jessie's Peter Rabbit plates and mug ;-) to make her feel more homely and sometimes they run out of plates and cups.
Also since being in the hospital quite a lot in the past few weeks, I am kind of getting tired of Mother's pride wholemeal bread so will be bringing some nice organic one for Jessie.
I am also considering taking my own duvet and pillows plus Jessie's horse bed linen as the hospital blankes are not warm enough with the airconditioning on all night.
I might add some more tomorrow as I prepare for Jessie's big day.
Stana xxx
PS: I am also bringing my IQ tests book - that keeps my brain working when closed in one room for longer period of time ;-)

Last edited by stana29; 11th February 2011 at 08:36 PM.
Reason: spelling

Re: What to take to hospital - suggestions please!

I love logic problems - the grid things - for keeping myself occupied

I definitely agree, now you mention it, on hospitals not being warm enough at night in many cases. The last time I was in was after my caesarian, and who knows, perhaps it was due to being massively anaemic (even though I was too hot during the day) but I was *freezing* at night, and once I'd got extra blankets had to jealously guard them as they kept trying to take them back saying they weren't necessary!

Anyway, thinking of you both and know how glad you'll be to get it over and done with. I'll be thinking of you especially on Monday!