The Joys of having CF

Saturday, April 21, 2012

Update!

So, I didn't post the update last night, but I am tonight :) There's quite a bit to update on, now that I sit down in "blogging mode". First, on Thursday (4/19) I had a Dr. appt. Things were great. I redid the aerosol scan from when I was in the hospital to see if the blockage was still in my lungs. It is still in my lungs...but not as bad. The doctor said she's not worried at all because my PFT's were 95% :) and were the last time to. She said she is not concerned because of how healthy I am. I thank God everyday for my health and how healthy I am.

Next, tomorrow (4/22) I am speaking at a Make~A~Wish fundraiser. I have to admit, I'm not sure what to say and that may shock those of you who know me because you know how much I love talking haha. So we'll see how it goes. I usually don't get nervous so i'm hoping it stays that way.

Also, this chica only has...2 classes left and i'm DONE with highschool. Yes, i'm very very excited, as you may or may not know i'm homeschooled, and I should WILL be done by June :) which is a whole year sooner than I would have finished if I was still in public school. So my plan after is to take some time off, Join the gym to get in shape because exercise is VERY important and key* to staying healthy when you have CF, and then go into business with my parents. Overall I can say my life is going pretty well.

Lastly...Walk~A~Thon time. My local CF walk is on May 19th at a park close to my house. I am still looking for donations, I apologize if it seems like all i'm doing is asking for money but i'm really now. What I'm doing is asking to see if you would be interested in donating money to help me and all the other CFers out there to find a cure for Cystic Fibrosis. The money donated does NOT go to waste. It goes to the Cystic Fibrosis Foundation (CFF) to help with research to find a cure for CF. The CFF is a non-government funded program, and they need OUR help to raise money so we can continue to advance in research. It is because of all of us raising money that they've come out with such great medicines. So if you would be so kind to help me hit my fundraising goal for my CF walk please visit my fundraising site: http://www.cff.org/Great_Strides/PaigeSchreiber6672 It would mean so much to me and all the other CFers out there. Help us to create more tomorrows everyday. I do want to say 'Thank You' to all of you have donated so far. I greatly appreciate it as do all the other CFers. Well I should get to bed, and get ready for tomorrow.

No comments:

Post a Comment

About Me

My name is Paige. I have Cystic Fibrosis. I am a fun loving, small town girl with big dreams...trying to live my life to the fullest. I am a Christian. My family is my priority. I was homeschooled since my freshman year of high school and graduated a year earlier at age 17-Senior 2012. I love anywhere with an ocean. My favorite color is Pink of course. I have a crazy love for food. I love to travel. I want to see the world. I enjoy spending time with my family & friends. In March 2011 I went on my Make~A~Wish trip to the most beautiful island in the world, Bora Bora. I have written a book called, Growing up with Cystic Fibrosis the first 13 years. It's about living with Cystic Fibrosis (an incurable illness). I wrote the book to help people. I have recently started to get involved with public speaking. I believe that my purpose in life is to help people, and to make a difference. I believe that God put me on this earth for a reason, and i'm not going to let him down.
Social Media sights: Instagram,Twitter, Snapchat & Poshmark: paigecf94

A Powerful Statement

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer