Search This Blog

Posts

David and I have been busy looking for beach houses to buy and we found one that we loved down at a little place called Yanakie, which is at Wilsons Prom. So we decided to head down on Saturday and have a look at it!
Yanakie is a bit over 3 hours drive from us, but seeing as my sister lives in Meeniyan we decided to see her, and then visit my parents in Melbourne on the way back.
The kids had an absolute ball!!
It was so so nice to get away from freezing Ballarat.

The house was great, but it wasn't close enough to the beach, and David wasn't happy that he couldn't go fishing due to the fact that the inlet is a marine park (so protected), so we will keep looking.
But it was so worth the drive.
It has reminded us how much we do love going for day trips in the car and how much the boys love it.

I often wonder if people actually understand what this means.
Sometimes, I can almost hear the collective groan when I mention it, or, if I correct a person.
I can see the eyes roll, and people look at me with 'that' tone of voice in their eyes.
You know what I mean.

The thing is, I am serious when I correct people. I choose to educate and encourage people to stop looking at someone with a disability as though they are nothing but that disability.
Just because someone may look different, may not be able to talk, or may have a label whacked on them, doesn't mean that they are not PEOPLE FIRST.
Imagine if someone judged you purely on your hairdo (which, not surprisingly does actually happen, just ask our caretaker prime minister), instead of talking to you, they looked at you and decided you were just that girl with funny hair who probably can't talk.
Which leads me to assumptions.

Why do people assume the things they cannot know? For example, there seems to be many…

I am still here in blogging world...just.
I know I said I wouldn't have too long of a break, but, well, clearly I am.

Think I might change the blog around a bit. Might inspire me to write again.

A quick update:Ryley's ratio on his Keto diet has been increased to 2.5:1. This is a miniscule change, because he has always been on 2.25:1. But it has certainly made a difference to him. We are seeing less seizures again and more bubbly happy Ryley. Braeden is testing every boundary known to humans. Funny, crazy, and frustrating all round. He did draw a picture of David the other night. I kid you not, he even gave him fingers on his hands. How amazing to watch neurotypical development unfold. I sit in awe of him.Braeden and Ryley just keep on loving each other (with lots of wrestles and fighting thrown in). I don't ever get tired of watching them both zooming around the house on their little trikes. I can see that Braeden will be talking for Ryley in the very near future. House r…

Ryley had a day off yesterday. Given that he also had Friday off to go to the RCH, he was pretty happy to head back to school today!

I haven't put any pictures up here for a while, so I thought I might put some up. Ryley is just developing so much at the moment. It seems he is having a real spurt. He is behaving himself and happy most of the time and it just so nice to see.
Braeden on the other hand...well...let's just say that is currently The Toddler versus The Stinking, Stupid, Mean Mum at the moment. Most days he can be found screaming blue murder because I have told him No. Or he will be screaming blue murder because he doesn't want my help, but he can't do whatever it is he is trying to do.
Sigh.
It is obviously very hard for him as he tries to be completely independent, yet still needs a bit of help. Plus he just can't regulate his emotions that well yet, so he spend a fair bit of time in a crying state.
But anyway.
We are all desperate for some warmer weath…

When you drop your children off at daycare, kinder or school, you assume that the people caring for them will guide them through their day, teach them new things, care about their wellbeing. You place your trust in the teacher’s ability to ensure they are included, that their needs are being met.

This trust becomes vital when you have a non-verbal child with a disability. In many ways, you have to cast aside your own fears and allow someone else to meet your child’s needs.

So what happens when that child is being purposely excluded? When they are being treated as though they are a disease and made to spend most of their time in a passageway or outside in the cold and rain. The other children are encouraged to not include them in their games, or even go near them for that matter. No part of the curriculum is being adapted to meet their needs. In fact, it seems as though the child is actively being excluded.
No, this isn’t happening to us. Let me be very clear about that. Ryley has a w…