Listen to our BBC Radio 4 appeal

Our lovely supporter Toni Madigan tells her EDS story and talks about how she benefited from contacting the EDS UK helpline. Please share information about the appeal and don’t forget to listen!

The BBC Radio 4 charity appeal on Sunday 22nd April was for EDS UK. We are so pleased that the Ehlers-Danlos syndromes and the challenges of being diagnosed got such great exposure.

The appeal is to raise essential funds to keep our helpline open. We receive far more calls than we can handle with one person and it’s frustrating for people in need of support and advice to have to wait to be called back. We’d like to increase the amount of time the helpline is open but we can’t do that without additional funding.