FYI - this article was written by our friendly health journalists, Judy Hobson (http://judy.rodneyhobson.co.uk/index.shtml) who I hope will be able to make it to the Patients' Day.

Choice magazine is subscription only but has a circulation of 268,000 so is widely read.

Thanks to Teresa Hunter for agreeing to share her story with us so we could put her in touch with Judy.

This highlights how important it is for the HSF charity to have as many of your stories on our database. Kudos to everyone who has been brave and is helping others by letting us have their stories - we have almost 110 now but we always need them on file.

If you want to share your story, please email me at kate.hindle@hughes-syndrome.org and I will send you the questionnaire

Nice Article. May I translate it to Portuguese and share it on my APS blog? Please?

5 years agoHidden

Yes of course the charity says yes, but you might have to ask Choice Magazine for copyright permission to stay on the legal side. I'm sure the journalist Judy Hobson wouldn't mind either but the article now belongs to the magazine.