Interstitial Cystitis (IC) Support Group

Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.

IC

Neurontin has helped me too. It takes months for the Elmiron to help and then the dr may need to increase the dose; I got a lot of relief once the dr increased my dose and I went on Neurontin and Vistaril. I can eat almost anything now and my peeing is almost normal in amount of times and I have much less vulvodynia......and believe me I had bad symptoms before. I was diagnosed about two years ago and am 57 years old. I used to use Tums a lot after eating or when I got bladder pain and it helped, but don't have to now. I was using Lidocaine ointment a lot too around the vaginal area, but rarely have to use it now. I know this can be very miserable and I hope you all find a way of relief. Don't forget to pray and have others pray for you.

i completely understand what you have dealt with. I was diagnosed with IC only between 2 and 3 months ago. I am also taking neurontin, elmiron, and amitryptyline. If you having any suggestions for me please let me know. I cry alot because i am not real sure on what is going on. I have days where i am normal and then days were all i can do is cry. Some days when i am having real bad days i just want it to end.

Talk with the dr about an antihistamine. Dont limit your fluids; it makes it worse by making your urine more concentrated; drink water; it won't make you pee anymore and maybe less........do you take pyridium when you need to? try tums before or after a meal; the antacid effect helps. Stress seems to aggravate things......join the depression group if you have not already and you may need to see a counselor for the depression. It can get better....mine was bad UNTIL i got on enough elmiron......make sure you are seeing right dr too; I see a urogynecologist. I think women understand this disease better than male drs. You also need to pray and ask others to pray for you and with you. If you are not saved, speak with someone about it.

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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??

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