Videos

Here are some videos about Amyloidosis, which you may find helpful and informative.

* Understanding AL Amyloidosis

Dr Julian Gillmore, Consultant Physician at the National Amyloidosis Centre, Royal Free Hospital in London, gives a brief understanding of AL amyloidosis how it affects the body and how it can be diagnosed.

* Amyloidosis - What you need to know

In this video Dr. Morie Gertz, a Mayo Clinic hematologist and chair of Mayo's Department of Medicine (USA), talks about Mayo's approach to treating this rare condition.

* Cardiac Amyloidosis - What is Amyloid and How Does it Affect the Heart? Pt 1

Martha Grogan, M.D., Mayo Clinic cardiologist, provides an overview of cardiac amyloidosis and the major types of amyloid that affect the heart. This is part one of a series of three videos that review what every patient needs to know about cardiac amyloidosis.

* Cardiac Amyloidosis - Tests and Assessments Pt 2Martha Grogan, M.D., Mayo Clinic cardiologist, reviews the tests used to diagnose cardiac amyloidosis. This is part two of a series of three videos that review what every patient needs to know about cardiac amyloidosis.

* Cardiac Amyloidosis - Treatment Options Pt 3

Martha Grogan, M.D., Mayo Clinic cardiologist, reviews the treatment options available for patients with cardiac amyloidosis. This is part three of a series of three videos that review what every patient needs to know about cardiac amyloidosis.

* Treating AL Amyloidosis

Dr Julian Gillmore and Dr Ashutosh Welchalekar, Consultant Physicians at the National Amyloidosis Centre at the Royal Free Hospital in London explains treatment options for patients with AL amyloidosis.

* Dr Giampaolo Merlini

Dr Giampaolo Merlini, Professor of Clinical Biochemistry, University of Pavia Hospital, Italy. Dr Merlini talks to Myeloma UK at an AL amyloidosis Patient and Family Infoday. He shares his thoughts on the treatment of AL amyloidosis in the UK and gives his view on what the future holds for patients with AL amyloidosis.

* Steffi Callan - My AL Amyloidosis

AL amyloidosis patient Steffi Callan reveals her treatment history and why she made the decision to go to the USA for a stem cell transplant. She shares how being diagnosed with AL amyloidosis has impacted on her life and the measures she has taken to raise awareness of AL amyloidosis.

* Ken Mantel - My AL Amyloidosis

AL amyloidosis patient Ken Mantel recounts the symptoms he experienced prior to diagnosis. Ken gives in an insight on what to expect when patients visit the National Amyloidosis Centre at the Royal Free and shares how his AL amyloidosis has been treated.

* Philip Owen - living with peripheral neuropathy

Philip Owen has Multiple Myeloma, which some AL Amyloidosis patients may also have. He had an unsuccessful Stem Cell Transplant so was treated with Thalidomide and Revlimid. Philip talks about the problems he has had with a peripheral neuropathy affecting his feet.

* Amyloidosis Awareness - Cartoon/Animated videoThis short educational video is for patients & caregivers. It is meant to promote understanding of a rare condition called amyloidosis. The hope is to encourage early & precise diagnosis, better treatments, and positive outcomes.

Did you know?

Australia now has three clinics for Amyloidosis patients!

Australia Wide: Dr Simon Gibbs

NSW: Westmead Amyloidosis Clinic

QLD: Dr Peter Mollee

New Zealand has one clinic:

Dr Hugh Goodman

Contact Us

Amyloidosis Australia Inc

Mrs Ellen Reid (MPS - Retired)

Phone: 03 5495 1169

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.