Ancillary Studies

Investigators with ancillary studies are welcome to use EPIC Obs data and specimens. All ancillary study applications that propose to use these samples must be reviewed by the EPIC Scientific Advisory Committee (SAC). Please contact SAC co-chairs Drs. Margaret Rosenfeld or Wayne Morgan to discuss your ancillary study application. Access information is listed below.

Clinical data

Investigators seeking access to archived data should apply directly to the Therapeutics Development Network Coordinating Center (TDNCC). Please email the TDNCC for an initial consultation.

Bacterial isolates

Investigators seeking access to bacterial isolates should apply directly to the TDNCC. Please email the TDNCC for more information.

Serum or DNA

Investigators seeking access to serum or DNA should apply directly to the Cystic Fibrosis Foundation (CFF). Information about the application process can be found on the CFFT Biorepository web page.

Funding Resources

Investigators are encouraged to seek funding for ancillary studies from the CFFT and the National Institutes of Health (NIH). Other funding agencies may also be interested in ancillary study applications. We encourage investigators to contact Drs. Margaret Rosenfeld or Wayne Morgan to discuss their ancillary study proposals.

Remote Access

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.

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