ADVOCACY

One of the objectives of Georgia PKU Connect is to support efforts on behalf of the PKU community. Often these efforts are in conjunction with other organizations, particularly the National PKU Alliance. Please visit the National PKU Alliance Advocacy Page regularly to stay up to date on federal legislative activities and action alerts.

Did you know that PKU children are entitled to assistance under the National School Lunch program? It’s true. If your child attends a school that receives funding under the National School Lunch program, the school is required to make accommodations … (read more)

For all of us impacted by PKU, one of the most significant issue we face is managing the cost of medical foods (formula and other special dietary products) necessary to properly maintain the diet for life.

Georgia PKU Connect would like to extend a big thank you to U.S. Senator Johnny Isakson for sponsoring the 2016 National PKU Awareness Day Resolution – S. Res 627! Senator Isakson also passed the inaugural PKU Awareness Resolution in 2012. … (read more)

We are thrilled to share some wonderful news. During the 2015 Georgia Legislative Session a state budget line item passed to setup a medical foods assistance program! This means Georgia patients with PKU or other Inherited Metabolic Disorder (IMD) who … (read more)