I will run a low-grade fever for up to 2 weeks (usually just one week) but the docs don't know why. My CBCs are always OK, Lupus, Rhumatoid Arthritis, etc. all negative. My allergist just said to take Tylenol for a week until the fever goes away which I have to do so I can work, I still don't know why I have these fevers!

Does anyone else have this problem and have you ever heard about this being a symptom of celiac disease?

The fevers started about the time I realized I am lactose intollerant--about 5+ years ago. I don't get sick, I am just tired.

Have you seen an infectious disease specialist to cover infectious causes? For me, prior to going gluten-free, my temperature _dropped_ whenever I got sick - and it's almost never as high as "normal" anyway.

Anytime I get gluten in my system I run a fever of about 99(I always run below normal any other time). I have always chalked it up to the immune response that is going on because of the gluten ingestion. White cells are being produced to fight against the gluten, so I figured that was what the fever resulted from.

When I first got REALLY sick from celiac disease I ran fevers up to 105 (not a typo) for 11 days. At that point I was hospitalized and six days later tested positive for celiac disease (blood tests high and no visible villi). But the reason they tested for celiac disease was because of my severe anemia, not the fever, which apparently is unusual. They kept looking for cancer for that.

I ran off and on fevers that gradually came down in severity. But for two months I spiked a fever over 100 at least twice a day. And my normal temp is under 98. Awful joint and muscle aches, too.

I have literally run a low grade fever for three years (not a typo either). It's getting better since I went gluten-free and have gotten my blood sugar under better control. If I get "glutened" or have a wild swing in my sugar, it's an immediate fever.

Hope that answers your question.

Brenda

0

~Brenda

Celiac, gastroparesis, PCOD, heart problems, pacemaker.

Diagnosed 7-12-04 via bloodwork. Never had a biopsy, doc didn't think it was necessary (said I would know just by going gluten-free).

I found an interesting site this evening that has to do with temp. It discusses low body temp. It says :

Chronic low body temperature, also known as Wilson's Syndrome, is related to many syndromes. It is found in many cases of allergies, apathy, chronic fatigue, "brain fog", "personal failure", depression, dizziness, hypoglycemia, lethargy, passive/aggressive syndromes, skin and joint conditions, sleep disorders, sexual dysfunction, past sexual abuse, yeast problems, porphyria, and many other poorly defined chronic low health states. Obviously, not all chronic problems are related to chronic low body temperature; but it may be prudent to measure one's body temperature on a routine basis to see if this is a possibility.

I use to have nearly constant low grade fevers before I went gluten-free. Since then my body temp does seem to be somewhat below normal.

Ianm

0

If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

My son has run high fevers (up to 105.1) all his life. A year ago when he was 7 he was diagnosed by an infectious disease specialist with a periodic fever disease called FMF (Familial Mediteranean Fever). But since we started him on the gluten-free diet the same month that we started him on the medication for the fever disease, they are going to take him off the meds and see if his fevers come back. This will happen sometime over the next few months. He see's the doctor this month. Well he has a fever today, but I am not sure if it is just a virus or if he might have grown out of the dosage for the meds. The doctor warned me that he could start getting break-thru fevers when he outgrew the dosage, and he has grown literally 10 lbs and 3-4 inches since going gluten-free last March!

Anyhow, I guess what I'm trying to say, is that sometimes the fever might be unrelated to gluten. You might have something else causing it, or it could be just your body's response to gluten ingestion.

What are the chances of one kid getting two strange genetic diseases? FMF really is rare, celiac disease is only thought to be rare, and the news is spreading quickly that it isn't but still I've got to think the chances of him getting both are pretty slim. To get FMF both parents have to be carriers of the gene and pass on both copies. No one in either side of our families ever had this disease and we both only have a little bit of Mediteranean in our bloodlines. And the variant he has is one they haven't even isolated the gene for. They have only isolated the genes for the top 9 variants. We only got the diagnosis of FMF because of a very good doctor. If we hadn't gotten to go to him we may have still been clueless. Other doctors passed over the FMF diagnosis because of our apparent genetic backgrounds, which didn't really match up with the known genetic backgrounds for FMF. Mostly it is the eastern mediteranean people, and we have northern mediteranean, and only a little of that! I joke around sometimes about how we found the "right" doctor. The doctor's name is Dr. Wright!!

Also, my son's "normal" his temperature range is between 96.6 and 98.8. With his most common temp being aroung 97.2. I chart his temp at least 3 times every day for the last 2 years and so I pretty much know what is normal for him. I would say that is low. The lowest he ever got was 95 and he was borderline hypothermic. This was after a fever episode of 105 and his temp dropped 10 degrees in a matter of 2 hours! To say I was freaked out is an understatement. It is sort of like his internal thermostat is broken. The meds he takes daily sort of cause his body temperature to normalise.

Anyhow, I hope that you find out what is causing your fevers. It could be gluten or something else.

I think it's important that we don't label everything as having something to do with celiac.I have been sick for almost 3 months and went through "it's all in your head" again. It brought flashbacks to all the years I had celiac without knowing it.It appears it's a diagnosis of achalasia often is suspected on the basis of the history. Patients usually describe a progressive (worsening) of dysphagia for solid and liquid food over a period of many months to years. They may note regurgitation of food, chest pain, or loss of weight. Rarely, the first symptom is aspiration pneumoniaI had been having a problem breathing, everytime I ate the pressure would be so bad in my chest and I did have pneumonia. Anyway, this is also possibly an immune disorder.Food for thought.....

0

Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!" "blood work show's a disease called celiac, but it can't be that because it's rare!" Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac offering support, myexperience and advice

I have since figured out that my fever is usually triggered by yeast - not gluten. It was an amazing discovery and I only had this problem since I figured out the triger when I eat fruit that is ripe or sweet desert that has not been refridgerated and it "hits" me again.

I was surprised to read about the low temp possibilities - my youngest son, the one withOUT stomach problems but with many allergy problems has a temp that runs about 1 degree below normal. The school now sends him home if he even runs up to 99 because for him, that is the eqivilant of over 100 for most people.

Last spring when I was very sick for a month because of the GI I ran a fever off and on. Pretty high for a little bit there too.
During the summer, when I got glutened, I ran a low fever too.

I am normally a bit under normal in temperature.

0

One Celiac gene and one gluten intolerance gene (HLA-DQ 2,1).Grain free, casein free, soy/legume free + a bunch of allergies I have had since I was a child (stone fruits, nuts..carrots)Following the Specific Carbohydrate Diet, but no nuts, legumes or casein.

Do any of you have elevated platelet counts with the low grade fever? How about Hashimotos? I have been running a low grade fever- 99-100.3 degrees since last Dec. every day, and my platelet count has gotten to 526,000. One dr. said I have a bone marrow disorder essential thrombosis cythemia). Now I found out I have celiac and am hoping this is the cause of the fever and elevated platelet count. I also have Hashimotos. Feeling horrible and getting ready to start the gluten-free diet and am a bit nervous about getting started. Anyone have any input or similar symptoms?