Month: December 2007

This is a little late for Christmas but just in time for New Year. I hope that your Christmas has been a good one. You got a chance to spend time with family, laughing, catching up, exchanging gifts and well wishes. I hope that you’ve had abundant blessings, while it may not be material things, simply by being with your loved ones, being healthy are more than adequate blessings.

As 2008 draws near, I want to with you health, wealth and happiness. May the coming year be great. I wish you a life as blessed as mine.

In a few hours 2007 will pass and we’ll usher in 2008, a new year. I’m taking the chance to look back at the year that was.

2007 started out rocky for me. I said goodbye to a very important relationship and while we’re friends, I don’t think it will ever be the same. At that time I honestly thought that I would not be able to recover from that loss. I think most of us think that way when we’re in the middle of that experience. With the help of God, faith, family and friends things are much better now. While I’ve moved on I don’t think I’ll ever be completely over it or fine with it. Although never say never.

Things always have a way or working out. There’s a popular saying that goes something like “life is like a wheel, sometimes you’re up and sometimes you’re down”. From the gutter where I was, life has a way of picking you up. Good things came my way.

My mom and dad celebrated their 30th wedding anniversary. A milestone by any relationship’s standards. I’m glad to have parents like them. They show me the meaning of true love. While their relationship is not perfect, no relationship is they’re trying their best and have done great so far.

February came and we lost one of our classmates. J.P. tragically passed away when he was a victim of a stabbing incident. It’s always sad when people die needlessly. It’s sadder when it’s someone you know and shared a experiences with.

I was nominated as a finalist for “The Philippine Blog Awards” last March. Unfortunately I did not win. It’s well and good because the winners deserved the win. I was just happy to get the nomination.

My 30th infusion came on April. 30’s a big number and I was just happy that after 30 infusions I haven’t had any bad incidents with it.

Genzyme’s annual report also came out in April. I got a kick out of seeing my face on a publication for an international company. I think it came out well, thanks to the photography skills of Chris.

May saw some problems again for me as my Bi-Pap machine went on the fritz. Luckily I was able to have it repaired and eventually even added a new machine to my arsenal. I now have 3 Bi-Pap’s that I rotate. When you’re dependent on a machine for breathing, you tend to get paranoid. 3 machines are good safety measure.

I had quite a scare in June. I thought that something was wrong with my heart. Turns out that my Bi-Pap just needed adjusting. Everything turned out after several trips to the doctor. I’m happy that up to now, I’m feeling good with my new settings.

I feel bad that the second half of the year saw me blogging less. I got busy and found little time to write. It’s not to say that the second half of the year was uneventful. Far from it. It was still quite an exciting year.

The second half saw me attend my first SFC conference in a long time. Add to that it was the first time I’ve gone on an out-of-town trip without my parents in years. I’ve always been afraid the last couple of years to travel without family because of my health situation. I felt I was doing well enough that it would be safe for me to do so. So I did. I had a blast!

It was also during the second half of the year that I was presented with the chance to participate in the village elections in a way that I’ve never done so before. I actually ran for “Bargangay Kagawad” or as a member of the village council. It was a great experience and I met some great people. My running mates were really a good bunch of people and I was happy to get to know them. Unfortunately we all lost to the incumbent. Still I will always treasure that experience. I’ve learned a lot from it.

It was this year that I also turned 30. If you know me and my story, you’ll know how important that number is to me. When I was growing up and was first diagnosed with Pompe disease the doctors we consulted earlier on told us that I might not live past the age of 30. So, that stuck to my head. It seemed at that time that it might be the proverbial finish line for me. With Myozyme, the treatment I’m getting, I’m feeling much better and I see myself really living past the age of 30. The past 30 years of my life have been great! Not perfect but great nonetheless. I’m truly thankful to God for giving me a wonderful life, loving family and great set of friends. I’m praying that the next 30 years or so of my life will even be better.

I was given the great honor of being named one of the 5 most inspiring PWD (Person With Disability) entrepreneurs for 2007. The award was given by the Go Negosyo group, an organization that is promoting entrepreneurship. I’m not sure if I truly deserve the honor but I’ll take it nonetheless.

These are just some of the things that have happened to me this past year. There are a whole lot of other things that transpired but I’d rather not bore you with it. Needless to say that as a whole it’s been a great year. I have a lot to be thankful for. 2007 has been good.

Tita Valderama wrote a nice feature about me on the “GMANews.tv”:http://www.gmanews.tv/ web site last November 29, 2007. I didn’t get to read it until a friend pointed it out to me. That was a two weeks ago but I only to blog about it now.

Normally I’m hesitant in talking about articles about me because well it will sound like I’m bragging. That aside, I’m writing about this particular one because it’s really worth mentioning. The article is well written. Even if I wasn’t the subject I’d still write about it.

So please if you have the time check out the article “here”:http://www.gmanews.tv/story/70765/Dickoy-Magdaraog-turns-disability-into-this-ability.

Adam is the son of my cousin Melvin and his wife Farah. Born on Nov. 3, 2007, Adam is the second child of the couple. Ashley, the eldest child is a proud big sister.

I was really flattered when Melvin and Farah asked me to be the God Father of Adam. Melvin and I grew up together and were really close when we were kids. We’re almost the same age with just a little less than 6 months separating us.

Being a God Parent is something that shouldn’t be taken lightly. I know I can’t give much in terms of monetary or financial support as of now but I’m quite confident that I can be a good example to Adam as he grows up.

I’m not sure if I’ll ever have kids so I’m at least happy I have several God children. Although I feel bad because some of them I have not seen for awhile. I hope to see them soon.

So, to Adam, welcome to the Christian world. I promise to do the best I can to be a good role model for you. I look forward to seeing you grow up to be a great man.

About Fight Pompe

Welcome to my corner of the virtual world. I mainly put up this blog to chronicle my fight against Pompe Disease. A rare genetic disorder. Apart from that I wanted to write about things I've learned going through my experience, stuff I love which includes design and a bunch of other stuff. I hope you enjoy reading my entries. Check out my about page for more details.