In 2011, CDC posted the CFS Toolkit on its website to provide an easy-to-use resource for clinical care. During recent months CDC scientists had been working with CFSAC and others to revise the CFS Toolkit. After publication of the IOM committee report, CDC decided to archive the CFS Toolkit and the brochure "Recognition and Management of CFS: A Resource Guide for Health Care Professionals".

Is there a press release on this? This is their chance to announce to patients that they are maybe considering new policies.

Or maybe they are finally feeling ashamed, and prefer to dump it down the memory hole. In a year we'll have forgotten it ever existed. In two years, when advocates bring it up as evidence of bad behavior, we'll be told, "That was a long time ago, so it doesn't count anymore".

p.s. I looked at the webpage closer and realized that it is sort of a press release, but the url is funny - it's not indexed under the "\cfs\news\features\" like the other press releases on this page.

Now I'm off to look for the toolkit webpage to see if it's really gone...

While poking around the CDC website I found a link to a Five Year Plan. Now I realize we're supposed to sneer at Five Year Plans, 'cause we know they are Communistic, somehow. At least, that's what I learned in grade school 50 years ago.

Five Year Plan said:

n response to CDC´s request for input to the strategic research plan, from April 27 through July 30, 2009, we received almost 1,200 items of correspondence from scientific societies, patient advocacy organizations, researchers, physicians, and many individuals with CFS and their family members. Comments specific to the draft could be categorized into the following topic areas:

Pathophysiology of CFS

Causes of CFS

Diagnostics

In-hospital and pharmacologic studies

Treatment and management of illness

Provider and public education

CFS in children

The current strategic plan addresses all of these issues.

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It will be an interesting trip down memory lane to study this document and see if CDC met any of it goals...

It would be nice to see it incinerated at high temperatures, followed by a dedicated stamping-on until it's ground into ashes beneath my feet. Or possibly, could it be ejected into deep space, left to float aimlessly for millions of years in the cold, empty nothingness, shorn of all meaning and impact until it eventually burns up in the vicinity of some distant star?

Like dinosaur bones and all things of antiquity!! Here's to "All things new" ME/CFS fam! It's been a rough time for me...the approaching summer and heat of the sun is brutalizing but my spirit is cheering!!!

Though I disagree that the toolkit should be burned to ashes and written out of history. I want it held up for all time as an example of how wrong psycho-experts can be, and how badly politics and ideology can poison a critical scientific process.

Though I disagree that the toolkit should be burned to ashes and written out of history. I want it held up for all time as an example of how wrong psycho-experts can be, and how badly politics and ideology can poison a critical scientific process.

It would be nice to see it incinerated at high temperatures, followed by a dedicated stamping-on until it's ground into ashes beneath my feet. Or possibly, could it be ejected into deep space, left to float aimlessly for millions of years in the cold, empty nothingness, shorn of all meaning and impact until it eventually burns up in the vicinity of some distant star?

It would be fun to have a public burning in front of CDC headquarters. I wish I were well enough to attend.

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Call me less personally detached or something, but I can't help wanting to see it printed off in multiple copies on special hard paper, rolled tightly into unyielding scrolls, and then inserted forcibly up a certain anatomical orifice of all the people involved in letting it see the light of day in the first place.