The Association of Hemophilia Clinic Directors of Canada (AHCDC) is an organization of Hemophilia
Clinic Directors from across Canada, incorporated in 1994. The goal of the AHCDC is to ensure excellent care for persons with congenital bleeding
disorders in Canada through clinical services, research and education.

Founded in 1953, the Canadian Hemophilia Society (CHS) is a national voluntary health charity.
Its mission is to improve the health and quality of life of all people with inherited bleeding disorders and ultimately to find a cure. Its vision is a
world free from the pain and suffering of inherited bleeding disorders.

The Health Information Research Unit (HIRU) in the Health Research Methods, Evidence, and Impact (HEI)
Department at McMaster University conducts research in the field of health information science and is dedicated to the generation of new knowledge
about the nature of health and clinical information problems, the development of new information resources to support evidence-based health care, and
the evaluation of various innovations in overcoming health care information problems.

The International Society on Thrombosis and Haemostasis (ISTH) is a global not-for-profit
organization advancing the understanding, prevention, diagnosis and treatment of thrombotic and bleeding disorders.

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for
inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948,
the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of
individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).

For 50 years, the World Federation of Hemophilia (WFH) has provided global leadership to improve
and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited
platelet disorders.