Okay so Ive been living with some pretty excruciating bone pain for say now 6mths. I keep it controlled to where I can live my life with Pred but want to come off the Pred and start with other stuff.

Ive maintained pain in the past with Oxy, Percasets, Vicodin, and it only dulls the pain. I only got these when I would go to the ER once the pain would become unbearable.

Here is why I titled this post WHY? Why is it that my family (not my husband who knows) extended and such think Im a hypocondriac? (sp) or they make me feel like my pain is not real ...Im so tired of this crap....they put me in a bad mood they piss me off..they make me wanna pull my F N HAIR OUT. Why is it that I am a liar? Why is it that I have some kind of problem where I think I have everything under the sun?

I dont..I have reallllll problems..and I just am asking advice cuz half of my family is in the medical field. Sorry but I had to vent.

I asked my mom today about Fentanyl and what it was and she acted like I was this crazy person. I wasnt saying I needed it..just had heard arthritis sufferers on here talk about it. I cant wait to get my bone scans. hopefully they will prove what Im been saying. And my sister's friend try to tell me that I am hypocondriac cuz I have been doing research on ankylosing spond....and have ALL THE symptoms.

Everyday of my 32 years with this disease! Its sucks! I think we all can sympathize.Been living with Crohn's Disease for 32 years. Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium. Resections in 2002 and 2005. Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

I feel the same way. Everyone a work and home has no idea what is going on, the only person I can take to is my grandmother who is 6 states away. She also has recently began to suffer IB. Most of the time people feel Im faking a symptom to get out of something or cause I just don't want to go do something, but what they don't realize is that I want to go see a movie or want to go out to eat but I have such bad stomach pain ad cramps I can barley get off the couch. Glad Im not the only one who fels this way.Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's. Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow through, diagnosed with Crohn's (22 years old 165lbs). Starting HUMIRA 9/10/2007.

Yes. No one knows or understands us. I have learned not to care anymore. My mom thinks her hemmies are just like my abscesses and fistulas and she can't understand why I just don't go and get pregnant. I just tell them to stop making comments if they don't agree with me or my treatments and I don't tell my family much about my health anymore anyway. Just my sis who is awesome and does try to understand.36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.

History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.

1st Remicade infusion 6/5/07. Lots of joint pain, and a new fistula since the 2nd infusion 6/19.

That's the ticket. I've stopped talking to just about everyone. They really don't get it. Even my father who lived with my Mom who had CD for their whole marriage doesn't get it, so I just don't try anymore. I talk to my Husband, who is wonderful, and my kids. Occassionally my friends, but not much because I don't want to be a Debbie Downer.Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Oh yes, my husband is wonderful. Very understanding and if it weren't for him I'd be really stressed.....I never knew that kind of understanding growing up. My mom just keeps trying to get me to drink prune juice in between telling me to just get pregnant and complaining about her hemrrhoids.....I'm not joking!36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.

History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.

1st Remicade infusion 6/5/07. Lots of joint pain, and a new fistula since the 2nd infusion 6/19.

I can relate songstress. My wife is great, she understands she has rheumatios arthritis. so she can relate to at least that part of my crohn's. My kids on the other hand think I'm making it all up. It also seems like the people at work think it's cool becouse I can't work every day. "Wow must be nice having so many free days off" Oh yea its great feeling like **@#$% every day. Its easy to fake things for a short time, but not for year after year. best wishes to you and hope you feel some relief soon.

Songstress....I empathize with you. I've been living with this darn disease for so long and I think the ONLY people that have ever understood, truly understood....are you folks. When I found this forum, I felt a big weight come off my shoulders....I almost cried. It was sooooooo nice to be able to talk to someone who gets it. If I say I'm hurting, my bones, my head, my tummy.....I know that you will all get it. I think of you people when I'm walking along with both my crutches and my legs and hips are so sore. I'll say to my daughter, honey I think I've had enough, I need to go home now....she relinquishes out of love for me, but I know she has no idea. .....although, she is pregnant at the moment and is feeling some fatigue, some hip pain, headaches....you know the regular pregancy scenario , so I think she is beginning to understand a little better. Tired old MaryP.S. Vent all you want dear heart!50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

I can understand. In fact the other day you may have seen my post on tylenol. I honestly was so sick of my back hurting I wanted to take a handful. Thank goodness I didn't. My rheumy says tylenol is all that I can take even though I told him it does not work. I almost feel like he thinks I am lying too.

right now my back is really hurting along with my gut. I took 2 tylenol and I know it won't help.

recently I started to cry because I think I will be in pain the rest of my life and i am 31. I think it bothers me more because the pred I took recently gave me some relief and I felt good for a little while.

I probably don't have as much pain as others here but I can sympathize and I don't think you are a hypochrondiac. I think you are just really hurting and the healthy people in your life just don't know how that feels.

I hope you get some relief soon and some answers from that scan. Let us know how that goes.

I just recently weaned off pred, am on remicade x 3 doses now, and I just went to the rheumy also who told me to take ES tylenol for my neck and finger joint swelling and pain. I think he thought I was going to ask him for pain meds. If he were the last doc on earth I wouldn't ask him. I can get what I need from my PMD. Usually I take 1 or seldom 2 Lortab a day. And yes, my sisters are afraid I will be a junkie. The problem is most people know that I have been ill and they always ask, "how are you feeling". Well my answer has been lately, not much change. I don't feel great. (Spent 2 days in the hosp last week for vom, h/a and D). Two relatives said, we didn't know. First of all, I am too sick to talk to anyone, and my s/o was watching out for me at the hosp. I think it may have been withdrawal from steroids. I met 2 very dear ex-coworkers while I was there, and they said, "I didn't even know you had crohn's".Karendee: Can't your PMD prescribe lortab or something for your pain? It doesn't even make me drowsy, it makes me more ambitious because I feel better. If you don't overuse, your doc should have no problem giving you a scrip.DIANNE

well I think I am saying this right..but isnt MY PAIN subjective NOT objective?? Why does anyone much less a doctor think that they can tell someone they are NOT hurting. I really hope that I dont get a doc that says take Tylenol becuz I do and it DOESNT work and I take ibprofen like candy even tho I know its not good for me but its anti-inflammatory and definitely has more of an effect on joint swelling/pain then some Tylenol.

Karendeee..ur in my thoughts..of course I know how u feel and thx I will let everyone know what happens with the scan. I want others to know on here, that they are not alone. Our pain is real, this illness is real..it doesnt have to control our lives. And I nor others should have to live with daily pain at least we should have something to control it!

This is why I don't discuss my illness with my relatives at all, unless to mention I cannot drink or eat a certain food item. Also, if someone asks how are you today? My reply is been better, been worst. Let them decide how to take that.

Have you ever had your liver enzymes checked since you are on Imuran?? That caused me severe joint pain that landed me in the hospital for 6 days because my enzymes were dangerously elevated from Imuran.

And yes, I hate talking to my family. As my mom says "aah poor Rachel, lets have a pity party, it always has to be about Rachel". Many a days in my mind I tell my mom to go f--k herself. I know thats not cool to say about your mom, but I'm fed up with her negativity, cinacism, sarcasm, and just plain sick of hearing her speak everytime she opens her mouth.

I can't moan and groan about my pains yet she can talk down to me and yet in the very next breath swear up and down I have arthritis, osteoporosis, and colon cancer just because I have CD and she says, "well that's what CD causes in people". Mother just shut up--you have no idea cuz everyone is different.

Sorry didn't mean to take over your vent session.30 yr. old dx with CD 10 years ago. Currently on folic acid and azulfadine. Had ileum removed and resection May 2007. Just started back to work after being off 13 weeks. Still feeling lousy. In the process of trying to get approved to start Humira ASAP!!!! It scares me immensely!!!!

hi Song I know that pain can stress us out when we have it and sometimes maybe we do sound a little hypo.... anyway I guess it sort of comes with all those times we feel like this has gotta stop hurting .Really hope your Drs. can help you that is a long time to be hurting. lol gail

I've come to realize, if its not one health issue, it's another, we're not faking, its just always different each day & thats why we 2nd guess ourselves. I have learned to keep my mouth shut on my medical issues & most everything else, unless, well, maybe, its family. God Bless

Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, depression/anxiety, kidney stones & sx to remove, now 44 yrs old. Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. I love BON JOVI MUSIC- Lost Highway, Keep the Faith; Living on a Prayer,