Charities and organisations

If your charity or organisation serves adults who are affected by Osteogenesis Imperfecta, Fibrous Dysplasia or X-Linked Hypophosphataemia (including patients, family members, friends or professionals) we hope that you will sign up to become a supporting partner of the Rare Musculoskeletal Disorders in Adulthood PSP. You can do this by contacting us. The role of the supporting partner is to help publicise the initiative with their members encouraging completion of the survey. It may also result in the opportunity to help define the final Top 10 priorities.