Star Power

In the article, the supermodel and spokesperson for the Global Down Syndrome Foundation is mostly asked about things that would interest the "Entertainment" audience - but one line sticks out:

"There's a remarkable disparity between children of color who get Down syndrome — life expectancy is age 23 — and non-black children with Down syndrome — life expectancy is 63 years old,"

We are grateful to have a star-quality voice bring this important issue to mainstream media.

Power in Numbers

The Road We've Shared is taking this opportunity to try, once again, to bring this issue to the attention of our community and researchers. Our national organizations are always willing to help us advocate for issues we find important. Let's tell them this is important!

Sign our petition and let our national advocates know that we need help getting this corrected. We need more research in this area.

All of our loved ones deserve to benefit from the successes we have worked so hard for. We will not discriminate within our own community!

Why is this not more publicized? why after all the specialist we've seen in my now almost 9 yr. old son of color who has Downs, was this never addressed with me? Every other scary synopsis is addressed at those first meeting about what he won't do, and this... this is huge. I'm angry and determined to find answers