Wednesday, May 6, 2009

potty issues

Last weekend we drove to a cute little town for some family time and a tulip festival. It is about 1 1/2 hours from our house and our first mistake was giving Laine a sippy cup full of juice on our way there. Then she asked for more to drink and I had snacks for the day and handed her a juice box....bad idea.

So about 1 hour into the trip in middle of nowhere (we had just passed a little town and 15 minutes till the next one) she reports....."I HAVE TO GO POTTY" and she was squeezing her little legs together as tight as she could. I told her to hold it and we would find her a potty.

So about another minute down the road she appears desperate and I realize she is not going to make it another 10 minutes. I tell hubby to pull over and we get out. I tried to act excited about peeing on the side of the road. "Laine, you get to go potty on the grass" "No mommy". Just as her little tush is sticking out a truck drives by with some teenage boys and beeping the horn and laughing. Laine was now not about to pee on the side of the road. "I just can't do it here" she tells me.

So back in the car we get and drive again. Thankfully we make it to the next town and pull into a gas station. Jeff parks the car and I tell Laine "come on let's go potty" Laine's eyes get big and she stares at me then says "i have to pee on that sidewalk?"

Books I recommend

Wide Awake

The Last Lecture

Three Cups of Tea

Eat, Pray, Love

If you lived here, I'd know your name

The Bible

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Followers

Sisters

May 2008

The Decker Family

Welcome

Welcome to the beginning of a new adventure... mom, nurse, scrapbooker and tennis player becomes a Blogger. Well recently I have been reading blogs that are interesting to me and I thought why not me too. I hope you enjoy our stories of our life...