What's the deal with raw dairy for leaky gut

This is my first post here. A quick backstory on me: I am 29 years old and lived a very healthy, active lifestyle as a personal trainer, nutritionist and business owner for many years.

At 26 I got hit with adrenal fatigue very badly- stage 4, near Addison level. I was put on various hormones and also ativan to help me sleep- I had a horrendous reaction to the ativan and spent the next year in severe post withdrawal syndrome; basically more stress in that year than most people will experience in 5 lifetimes. Then, one day I woke up and had encephalitis. This encephalitis triggered M.E./CFS in me and for the past year my condition has been steadily declining. I have severe brain and organ damage from the ME (mitochondria damage) and am bed bound 23 hours a day. There are some days where my brain function is so poor I suffer from dementia. Prior to the adrenal fatigue 3 years ago I never had any health problems, but unfortunately now I am well into chronic disease.

Now for my question- I have been eating Paleo for the better part of 8 years and adding in some GAPS strategies the past 3 to heal my gut since the adrenal fatigue hit. I am very heavy on home made bone broth, home made coconut kefir and home made fermented vegetables.

I have had my digestion tested and I have very poor digestion of fats, proteins and carbs, hypochlorhydria, candida and I suspect dysbiosis. I honestly have no idea why I have these conditions considering how well ive eaten and my healthy lifestyle prior to getting ill. I am looking to incorporate anything else I can into my leaky gut diet and one thing I constantly hear is raw fermented milk or goats milk. I haven't eaten dairy, gluten or soy for several years so raw dairy seems very contradictory to me. Can anyone give me any tips as to other stuff I can do? And where does the line lay with raw dairy products?

I guess the team of Yale neurologists I had should have consulted you then. The active infection and white blood cells in my spinal fluid, loss of motor function, amnesia, fever, memory loss and cognitive problems must have also been a part of my scheme to stop loving life and make up being sick, not encephalitis

OK, joking aside, it is not to say that your condition is impossible, but it is very rare. Almost 100% of humans have been exposed to the HHV-6 virus by the age of three and then the virus remains dormant in the brain and in spinal fluid. So your detection of HHV-6 is not unusual. If you did indeed have a case of encephalitis because of HHV-6, then you could likely be disabled.

Lmao. Gotcha, now I see what type you are, just because there isn't an I.insurance code for it doesn't mean it's not real. Why don't you see your way out of this conversation and let the adults continue talking.

I have multiple tests to prove everything, and the fact that I'm bed ridden 23 hours a day at 29 years old. Of course a Paleo diet isn't going to fix it and I am pursuing many treatments but it never hurts to add any little thing you can do. You have obviously never felt the desperation of chronic illness. You can't say no offense then blatantly offend someone. No offense Matt, but you're PhD didn't teach you much

Agreed. There's a lot of symptoms getting rattled off, but no underlying cause. And half-baked home remedies or wishful thinking that eating X or Y is going to fix things isn't going to make problems go away. If you're as broken as you claim to be and have been paleo for 8 years, has it not crossed your mind that this isn't something that a paleo diet might be able to fix?

Well Matt is partly right in saying that some of these conditions simply don't exist in the medical community or in a scientific sense however I dont doubt that the OP is suffering right now but its likely he/she has no idea whats going on reight now and should get checked up by a real doctor.

I guess the team of Yale neurologists I had should have consulted you then. The active infection and white blood cells in my spinal fluid, loss of motor function, amnesia, fever, memory loss and cognitive problems must have also been a part of my scheme to stop loving life and make up being sick, not encephalitis

You are very convincing! Lol. However I don't believe I have any local places where I could find such a product. I would be bound to Whole Foods and places like that. My thought was simply goat milk kefir but never considered cheeses and such. I guess I'm looking for something that will help the dysbiosis more than potentially hurt it (from histamine reactions and lactose, etc..)

I love raw dairy and if you have a good local source where you know the farmer, I think it's really beneficial. I go through phases when I can and can't buy it locally, and I love drinking it when I can. At first your digestion might freak out having raw dairy chock full of enzymes and the stuff of life, but it'll get used to it. I recommend warming it slightly (not in the microwave and not more than just warm), and just not drinking it cold. And don't chug it. This stuff grows and heals babies. It's meant to be absorbed slowly. I think my body feels better when I do have it than when I don't, but who really knows? I think it's beneficial because it's one of the only natural edible that wants to be eaten.

I've never had any noticeable problems with dairy but had omitted it just to be safe; the only source I've had in the past few years is goat milk kefir. My doctor wants me to increase my fat intake so that is a potential source but I'm wondering if the risks outweigh the benefits.

Do you believe that about 1 litre of coconut kefir a day plus 3 servings of fermented vegetables is enough probiotic?

raw dairy, when from a credible source, is a great source of natural probiotics and enzymes. Many people who cannot tolerate pasteurized dairy can digest raw dairy. This is highly individual, but if you want to give it a try, consider trying goat dairy first (often easier to digest than cow dairy, closer to human milk in composition, and is naturally homogenized) and start small. Do butters, cheeses, and yogurts before straight milk.

You are not a quack and it's NOT all in your head. I'm sorry about Matt11's answer. Those who have not been this sick will not understand. Don't listen to them. You know your body and want you've been through more than anyone.

Wow, what a piece of shit you are for trying to dispel someone's suffering. I never thought I'd say this, but I hope you get sick some day so you can be in misery and someone tells you it's all in your head.

Is there any real advice and help to be given on this board? Or should I just expect uneducated people like Matt11?

Well Matt is partly right in saying that some of these conditions simply don't exist in the medical community or in a scientific sense however I dont doubt that the OP is suffering right now but its likely he/she has no idea whats going on reight now and should get checked up by a real doctor.

I have multiple tests to prove everything, and the fact that I'm bed ridden 23 hours a day at 29 years old. Of course a Paleo diet isn't going to fix it and I am pursuing many treatments but it never hurts to add any little thing you can do. You have obviously never felt the desperation of chronic illness. You can't say no offense then blatantly offend someone. No offense Matt, but you're PhD didn't teach you much

No offense, but adding raw dairy is not likely to be solution to all that ails you. I mean, I'm highly suspect that everything that you describe is really wrong with you. Not to mention you're mentioning every quackish diagnosis the paleosphere lots of talk about (adrenal fatigue, mitochondrial damage, leaky gut, brain fog…), most of that's in your head.