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Friday, July 30, 2010

Research Studies and the CDC

sigh....I saw this list of recent CFS studies this morning on a list I subscribe to and just had to share it with you - it's such an obvious example of all that's wrong with how the CDC approaches CFS.

The first one (#2) is from the Whittemore-Peterson Institute, an addendum to their orginal Science article on XMRV in CFS, detailing exactly what kinds of tests they used to detect XMRV so that other organizations can replicate their results - very useful, real science.

The second item (#3) is the CDC's most recent study on CFS. It's just so absurd and un-helpful, it speaks for itself, don't you think?

Which research would you rather hear about, how to detect a newly discovered retrovirus in your blood or what personality features are commonly found in people with CFS?

I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on living and enjoying our lives in spite of these challenges.

About Me

I'm a freelance writer who loves to read and cook. My husband and I have two sons, and we all enjoy travel and being outdoors. My older son and I both have chronic illnesses, but we focus on finding joy in every day!

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