“It’s shown what’s important and what isn’t, who’s there and who isn’t and people who just want a bit of gossip in comparison to those who genuinely care.

“We went from the happiest day of our lives getting married to this. It’s been hell but Brogan has been an absolute star.”

SWNS

Aimee and Craig Partridge with their children on their wedding day (L to R) Nualah, one, son Harloe, two, Brogan-Lei, seven, and Niabhy, five.

Brogan-Lei, who lives in Bartley Green, Birmingham, was with her parents, her two-year-old brother Harloe and her two sisters, Niabhy, five, and Nualah, one, in Newquay, Cornwall, when the meningitis struck.

After her parents’ wedding on 18 June, Brogan-Lei became unwell with a suspected eye infection and was given antibiotics.

But her mum took her to their GP after she noticed a rash on her skin when the family returned from Cornwall.

She was rushed to Birmingham Children’s Hospital on 27 June where she was diagnosed with meningitis B.

SWNS

Brogan-Lei in hospital

Doctors initially told Brogan-Lei’s parents she would only lose her toes, but on Wednesday 13 July, they said her entire left foot would have to be amputated.

Despite her ordeal, Brogan-Lei has recorded a tear-jerking video message from her hospital bed thanking well-wishers.

With her arm bandaged and rashes caused by the meningitis still visible, she said: “Thank you everybody for being so kind.

“I know you all want me to get better soon. I’m going to do it.”

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SWNS

Mrs Partridge said: “She is well in herself.

“The actual infection has gone now so she is over the worst of it, it is just the damage it has left behind.

“We found out we are going to have to have her left foot amputated this week. We haven’t been told what day yet, it is up to the doctors and consultants to decide.

“Her dad told her and she was actually relieved. She had got it into her head that she was going to die but she hadn’t told us that.

“We were both at the hospital all day every day but now we are taking in turns so one of us can be with our other children too.”

SWNS

Mr Partridge added: “We would like to raise awareness for meningitis B and the symptoms.

“There isn’t a standard immunisation through the NHS and a lot of people are unaware of the dangers as the infection disguises itself in among common bugs, making it difficult for parents to differentiate.”

The mum’s cousin Lisa Reece, 28, from Castle Bromwich, Birmingham, said she couldn’t hold back the tears when she visited Brogan-Lei.

“Nothing can prepare you for what meningitis does to a body, let alone a little seven-year-old girl,” Reece said.

“You see it in pictures but in reality, it’s much, much more than just a rash.

“Dark and deep tissue damage is visible and a lot of surgery will be required to help the healing process.”

Friends and relatives have now launched a GoFundMe fundraising campaign for Brogan-Lei and the children’s hospital, which has raised £2,140 in just six days.

A petition demanding all children be vaccinated against meningitis B, rather than only those in their first year of school, attracted 800,000 signatures earlier this year. The Government rejected the petition.

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Stiff Person Syndrome

People who suffer from this acquired neurological disorder experience repeated, often painful, muscle spasms as well as muscular rigidity and stiffness. According to the National Organization of Rare Diseases, spasms can occur at random or they can be caused by something as seemingly benign as light physical contact or an unexpected noise. The cause of Stiff Person Syndrome isn't yet known, but symptoms can be stabilized with medication. Left untreated, however, a person can lose the ability to walk.