Project information

National Support Worker

A unqiue, cutting-edge UK National Support Worker Project accessible 24/7 for children and young people with ME/CFS in crisis. This could save lives and force policy changes that will improve children's lives.

Charity information: Association of Young People with ME

Need

Children isolated and forgotten remaining unseen by professionals and left to continue into adulthood with a debiliating illness and additonal behavioural and psychological disorders.

Solution

This project will reach out to these children and young people and link them up to ME specialist support. There are only ten paediatric ME specialist teams in England, but once the child is identified by our NSW, the ME specialist teams can link into the local GP and paediatric teams to providing advice and guidance on supporting a young person with ME locally. Vital if the young person is bed or housebound.

Activities

Impact

Children and young people making a good or full recovery from this dreadful condition returning to school, taking exams, going on to college, university andand reaching their full potential,

Risk

There is a risk that will not be able to link ME specialists into local services - especially if the GP does not believe in the condition. If this is the case, we work to provide local support through the local CAHMS teams or other mutlidisciplinary teams.

Reporting

Funders will receive a monthly email repotr on facts and figures and expenditure and a full report on outcomes at the end of the year and a copy of the accounts and annual review.

Beneficiaries

Why Us?

We have an established national helpline which highlights children and young people at risk and this work would picked up by the National Support Worker. Our charity has won the respect of health and educational professionals who woudl eb working with us to make this project a success.