Objective

Data sources

English language studies published in peer reviewed journals were identified by searching Medline and PsycINFO from 1979–93.
Additional studies were identified by scanning the bibliographies of retrieved articles and by contacting experts.

Study selection

Studies were selected if the intervention targeted children with a chronic health condition or their family members; a planned
psychosocial intervention designed to achieve psychosocial benefits was evaluated; psychological or social outcomes were examined;
≥15 participants were included in the experimental group; and the study included a random control group, a matched comparison
group, or a convenience comparison group.

Data extraction

Data were extracted on type and intensity of intervention, target group, degree of programme integration with medical care,
level of training of the intervener, consistency of delivery of the intervention, extent to which a theoretical model was
used to develop the intervention, study design, sample size, patient baseline characteristics, type of chronic illness, follow
up, and outcome measures.

Main results

266 articles were identified and 15 studies met the selection criteria. 7 studies evaluated a psychosocial intervention in
children with asthma, 3 with cancer, 2 with epilepsy, and 3 with mixed diagnoses. A meta-analysis was not done because the
studies were heterogeneous. 10 studies were randomised controlled trials, 7 of which showed a positive effect on at least
one outcome (table).

Commentary

Many children and their families are vulnerable to psychological, developmental, and social problems secondary to serious
chronic health conditions. Although many interventions have been studied, few have been evaluated properly. Bauman et al have completed the first comprehensive review of the literature on this topic. They scrutinised studies using a sound methodological
approach, critically appraising the studies' intervention programmes, methodology, and theory base.

The major message from this review is that there are many positive effects for a number of programmes. Disappointingly, however,
Bauman et al found that many studies had serious methodological flaws that limit the interpretation of results.

Of the 15 studies that met the selection criteria, 10 were randomised trials, 7 of which reported positive outcomes. The programmes
that were effective involved interventions typically provided by nurses, such as health education; relaxation training; coping
exercises; assertiveness training; parent counselling, and programmes to improve decision making, problem solving, coping
skills, disease management, and social support. These interventions were directed at the children, their families, or both.
The children involved in the studies which showed positive findings had asthma, epilepsy, cancer, or mixed diagnoses. The
interventions ranged in duration from 3 weeks to 15 months; none, however, included a long term follow up to determine whether
the intervention had a lasting effect.