Disability

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

This was going to be another post about my health, because lots of shit is going down atm with my body and brain, but I thought I’d give you a break and have a rant instead. I’m going to start by saying that I feel really great. I am not writing this post because I am in a bad mood, but because I have had my favourite season (Autumn, obvs, closely followed by spring) marred by fireworks, and I’m not the only one. For me personally, fireworks have negative connotation due to a bad experience one bonfire night. I can […]

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

I remember when I first started taking antidepressants. It was perhaps 15 years ago after I’d had my first child at just 17. I was vilified for being a teenage mum, and for a multitude of reasons (including attitudes towards this Mum still in braces, by the medical staff of all people) believed that because I felt the way I did, I was failing as a mother. It was in fact post natal depression. Not my first dance with depression, which haunted me all my teenage years, even before my son came along. I saw my doctor when my son […]

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

Today I’m going to be talking shit, or poo if you prefer. Not the first conversation topic you’d reach for necessarily, but one that definitely needs to be spoken about more, once we’re done talking about the weather that is. The matter on my mind is actually IBS, Irritable Bowel Syndrome, which is so much more than just poo. According to the NHS website, the main symptoms are: abdominal (stomach) pain and cramping, which may be relieved by having a poo a change in your bowel habits – such as diarrhoea, constipation, or sometimes both bloating and swelling of your stomach excessive wind (flatulence) occasionally […]

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

I know that I have blogged before about just how lost I’d be without my car. Given the energy and the time, I enjoy driving my adapted vehicle all over the country, with strategic stops along the way. Here is a fantastic infographic on some fantastic accessible places to travel to all over the country. Right now I lease my accessible vehicle, but when the lease is up, I shall be looking at used mobility vehicles to look at the best way to keep me on the road, enjoying the fruits our country has to offer. What are your experiences of […]

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]