I have gorlin syndrome, but in the last 2 yrs I have had terrible stomach pain. It is terrible. It start from my belly botton and works up into my ribs on my right side of my body. I am bloated been accussed to be pregnant but I am not,I can't wear anything except leggings cos it kills my stomach to wear anything else. I can't get to sleep, I can't bend down to pick anything up.I don't feel like eating and when I do I feel sick. It hurts to walk far,to sneeze, to laugh,to cry, or to do anything it is that painful, it like someone has stabbed me but it is constant. It is that bad that have had to give up work. The doc's have tryed everything I've had ct's scans,mri scan, I've had a camera to look in my large intestines that was fine. I have seen that many specialist it untrue. My GP is know sending me to see the surgeons again to see if they can do anything. I was just wondering if anyone else has had a similar problem like what I am going through?

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Just wondering how you are doing following your post above. Did further investigation reveal anything. Sounds like you were going through an awful time and hoping you have some relief from the symptoms.

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