Register now for the 2018 debra Care Conference! Join us for the 2018 DCC, which will be held July 22-25, 2018 (with hotel stays until the 26th) at the Sheraton Grand at Wild Horse Pass: A Phoenix Family Resort in Chandler, AZ. Click here to find out more!

TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with.

Thank you to our sponsors, donors, and volunteers who supported the 19th Annual debra of America Benefit, which was held on October 26 at Guastavino’s in New York City. Click here for more details on this evening of honors and celebrations.

Your support improves the quality of life for thousands living with EB; it helps us provide free bandages to EB patients, through one of our many programs, and allows us to fund groundbreaking research – research that is already pointing towards a cure! Click here to support debra of America and make an impact among the EB Community today!

Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more.