Life seems to become more of a battle and you feel your losing control. Unable to do half of what you did a few years ago. The weight of an “Invisible Illnesses” is now gaining more of your life, and ...Read More

Another chapter in my book of life is either beginning, or ending. I began this "blog" as a journal......and the drama, trauma, dreams and love continue to write out my journey in this body. I am aging fast. I am ...Read More

Its January, where does the time go? Its been quite some time since I took a peek at my site. I knew I posted the full text of the ACA awhile back. Of course, I need to research the medical ...Read More

SECURITY UPDATES: IF you get blog updates by the "FEEDLY" (See photo below) interface (SPECIFIC FEEDS), Due to potential security risks, this method of "FOLLOW" will be discontinued on 11/17/17. Instead, sign up for SUBSCRIBE TO BLOG (first tab on ...Read More

Have you ever visited a Plasma collection facility? Have you heard the screaming ads on media of payments of up to $300 USD for 5 plasma donations? I have been to a few local Plasma collection centers. As well, I ...Read More

SEPSIS. September is Sepsis Awareness Month. A topic close to me, as I lost a close family member last October due to Sepsis. She went into the hospital for an unrelated and non-emergency medical procedure. She died two weeks later, ...Read More

http://asheducationbook.hematologylibrary.org/content/2012/1/301.full The Many Faces of Common Variable Immune Deficiency. (Cunningham-Rundles, C.). American Society Of Hematology. Volume (2012/12/8). Retrieved September 17, 2017 from http://asheducationbook.hematologylibrary.org/content/2012/1/301.full For personal use only ...Read More

View this post on Instagram What Every #chronicillness #patient needs to know How your illness is a billion dollar profit #pipunited #know via @RiplApp A post shared by Primary Immune Patients United (@pipunited) on Sep 17, 2017 at 4:15pm PDT ...Read More

6/30/17 Update McConnell is working on the moderates Capito and Portman, offered both double-digit billions for their yes vote. He is putting the bait packaged as the offer would help the opioid crisis. As of early 6/30 both declined and apparently want more money for their states because of the Medicaid cut. I really don’t know why he is offering billions for opioids epidemic in Maine and Ohio. Treatment would not be covered if both states accept the 2 billion dollar bribe to cut ESSENTIAL HEALTH CARE BENEFITS--his offer to buy these votes will increase, as he may have more flexibility with reducing a small amount from the trillion-dollar tax credit.

Reminding Heller and Collins why their no vote is vital. And congrats to them, stroking their ego, and thanking them for their support is needed. We can’t lose these two.

McConnell is also tightening up as he approaches the Conservatives. Contacting the conservatives should also be on our email, phone, fax and social media to do list every day. We have until Tuesday when they return from recess. I’m up all hours of the night waiting to see if he has cut a deal while America sleeps.

NEW: Third: The Senate Finance Office is TALLYING CALLS from people who want a public hearing of the Health-care Bill: CALL202-224-4515–The ranking member is Senator Ron Wyden: 503-326-7525 503-589-4555 and 541-431-0229ADDED 06/29 Updates:

Sign Your Ammendment to the #BCRA (AKA AHCA OR TRUMPCARE):
To stop Senate Republicans, we have to speak up. Complete your amendments to the BCRA/AHCA/Trumpcare. Complete the form at https://www.ouramendments.org Your information will be inserted into the amendment. Your amendment will appear on the screen for you to print or save, and Indivisble will deliver a copy to your Senators’ health staffers.Courtesy ofIndivisible:

NEW: Third: The Senate Finance Office is TALLYING CALLS from people who want a public hearing of the Health-care Bill: CALL202-224-4515–The ranking member is Senator Ron Wyden: 503-326-7525 503-589-4555 and 541-431-0229

The CBO does not include the millions of high-cost or pre-existing conditions as the uninsurable forecast of 23M..
The CBO states, “that the funding available to help provide coverage for those high-cost services would be insufficient in some cases even if a special program was designed for that purpose. Therefore, the agencies expect that insurance coverage for high-cost services would become extremely expensive in those areas, as it was in some places before the enactment of the ACA in 2010. A state is required to have mechanisms to reduce the chance of such outcomes as part of its waiver program under current law,but would not be under this legislation.”….AHCA gives states that accept waivers 2 Billion Dollars. The CBO quotes,”…states can use the funds for purposes other than health care”. CUTTING EHBS includes non-treatment of chronic illness and more

Bear with me on this complicated and urgent subject. It is important to understand the #AHCA contents, key concepts, and how it will cause mass death. This is factual. PLease refer to the documents for the specific legislation, also linked below. This legislation will affect you and your loved ones. It is worth reading as I break it down to basic understanding of the consequences of AHCA that is in process of becoming law THIS WEEK.

~~~Senate released the “HR1628 Better Care Reconciliation Act of 2017” {BCRA}, also called #trumpcare or the #AHCA, on Friday, 06/23/17. The CBO analysis released, 06/26/17. The horror of this legislation, it may become law by midweek.What is the CBO?

The Congressional Budget Office, known as the “CBO” reports as a nonpartisan entity that provides long-term statistical data analysis for “congress”. Statistical data reports include cost benefits, analysis, estimates and deficits that range from agriculture, health care, taxes, veterans and more. Final legislation is typically driven by the CBO forecast.

CBOs Influence on #AHCA
**In the case of the HR1628 now known as the BCRA (#AHCA); the CBO Report analyzes past healthcare data, projecting current, proposed legislation and the financial overall (not inclusive) impact.
It seems that the CBO report is heavily weighted with many proposed bills, that will have any impact on the financial economy. Much like a home inspection is to a home seller. On a larger scale, that potentially affects significant population bases within the United States.

*However, the CBO does not include the millions of high-cost or pre-existing conditions as the uninsurables.
The CBO states, “that the funding available to help provide coverage for those high-cost services would be insufficient in some cases even if a special program was designed for that purpose. Therefore, the agencies expect that insurance coverage for high-cost services would become extremely expensive in those areas, as it was in some places before the enactment of the ACA in 2010. A state is required to have mechanisms to cut the chance of such outcomes as part of its waiver program under current law,but would not be under this legislation.”
No mention of how, or if, the chronically ill can or will be insurable or have access to care.Stunning. Petrifying.
CBO OFCBO Reveals NO SOLUTION FOR PRE EXISTING CONDITIONS OR TREATMENTS “NO PROTECTIONS UNDER #AHCA”

As discussed EHBs, will be annihilated. If you haven’t already reviewed what cuts will happen when EHBs get tossed. Please become familiar ASAP, as these cuts are diabolical.HERE! HERE! HERE! HERE!

Hits home with a lot of persons who were born with defective genes. Leaving our children behind as orphans is a real fear with #AHCACBO FACT 2:
The CBO data omitted millions more as uninsurable by dismissing chronic illnesses and treatment in the last analysis. Perhaps, they have accepted the idea of the chronic illness patients fate? WE HAVE NOT.

CBO CONCLUDES: State Bribery to End EHBs

The last CBO result concludes 23 Million will be uninsured. As stated above, the last numbers are perhaps double, due to unknown omission of Pre-Existing Conditions. The data seems flawed. **Of significance #BCHA or #AHCA gives states that accept waivers 2 Billion Dollars. The CBO quotes,”…states can use the funds for purposes other than health care”. Reportedly, taking effect July 2017-July 2019.

The Catch

Keep in mind, when accepting waivers, states will drop EHBs, and other current health care protections. The ending of EHBs means treatment for chronic conditions, prescriptions, maternity, basic blood work, and more are also no longer covered by insurance.

Senate #AHCA Bribes states with 2 Billion to drop or change EHBs 2017-2019

Republican Tactic:

*Smokescreen-as usual. Do not divert your attention for ANYTHING. Healthcare and lives are at stake.

*The CBO score gives Mitch McConnell TWO HUNDRED BILLION “extra cash” (by not including the chronic illness patients in their last data) to bribe the few Republicans to flip their moderate or potential no to a yes vote. It happened with the congress vote, and it will happen again.

*Ironically, McConnell (R) KY: His life was saved from polio, by government funding for his treatment and rehabilitation. He is one of the MAIN leaders of this death pact, 2nd to Paul Ryan.Mitch McConnell, Ringleader of the Death Spiral: Polio as a child, the government paid for his treatment and rehabilitation. His heart is damaged from the Polio, as killing millions of Americans he has no heart

Fact: The Republican Party: Profit & Power: NOT PATIENTS Kicking elderly out of nursing homes, children from Medicaid, disabled from access to medical care equals the exact amount, 33 Billion in TAX cuts for the wealthy

WHAT CAN YOU DO NOW?
We are running out of time, call, email, fax. Most importantly: Talk to your neighbor, family, friends, tell the, the facts. They will say, “I heard the opposite on the news, radio, internet, newspaper”. Redirect them to the facts. All legislation is on this site, and original sources cited. WORD Of MOUTH, In person, on the Phone (not texting). Sadly the technological world makes reality seem distant people need to actually understand facts, they do not understand the size as hitting them, until it’s to late. Again here are the contacts;Call these Republican Staffers Right Away stop Senates #AHCA

While large organizations denied these facts to Chronic Illness Patients. See: HERE Am I surprised?
After viewing republicans DENY cuts to Medicaid publicly; knowing they just sentenced children and the elderly to death. Yes, I believe it now.

Sadly, after putting many of these pieces together and following the trail of money. I am not surprised by the actions of greed. An atrocity. They are all committed to Politics & Profit; not Patients. While innocent patients, who would do anything not to be sick, suffer. Our voices unheard.

Cures and the Ugly Truth

Status Quo and Status Quo Bias:

The absolute definition of STATUS QUO; Patients that BELIEVE the current health care situation is *better than any change, therefore they refuse to accept truth, or facts–Even-when their life depends upon fact. They refuse to accept an alternative, the facts. If one attempts to present the facts, and disrupt their current world of life with the “status-quo”; they in fact, respond with vengeance, down playing and ostracize. This defines the status quo bias.

McConnell could have started over and had the Senate develop its own legislation, perhaps even working with Democrats on a bipartisan alternative that could withstand the test of time. Instead, McConnell put a plan in place to pass something close to the House bill using three simple tools: sabotage, speed and secrecy.–Andy Slavitt

State elected officials are aiding and ebedding trumps agenda; A Resource

Im sharing a valuable resource that helps the public determine which of their State elected officials are aiding trumps agenda. From Russia to the Muslim Ban, the treason of America begins. He is still president of our country. Hmmm, how is this possible? His accomplices, thats how. Take a peek at how your state representative has been protecting trump.
You can also locate this information by reviewing the legislation. However, Trump Truth Hiders, puts all of this great information in one place. Certainly adding this to my bookmarks!

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H.R.1 - For the People Act of 2019 H.R.1044 - Fairness for High-Skilled Immigrants Act of 2019 H.J.Res.46 - Relating to a national emergency declared by the President on February 15, 2019. S.47 - John D. Dingell, Jr. Conservation, Management, and Recreation Act H.Res.109 - Recognizing the duty of the Federal Government to create a […]