Ashfield reports back from the Orphan Drugs for Rare Diseases Summit

Ashfield has a breadth of experience with orphan drugs and we are passionate about helping to improve the lives of people living with rare diseases. Last week we were delighted to attend the ‘Orphan Drugs for Rare Diseases Summit’ 22-23 March in Berlin.

The event was well attended by healthcare experts and industry leaders, all keen to share learnings and experiences in the field of rare diseases. Through a series of presentations, the event explored the challenges of rare diseases from different perspectives including:

As sponsors of the conference, Ashfield was delighted to attend, meet with our pharma clients and deliver a presentation. Matt Brierley, VP Medical and Scientific Services, and Nagore Fernandez, Head of Patient Services for EUCAN, presented ‚From infancy to adulthood: a new generation of challenges for rare disease communities‘ covering:

Enabling timely, successful patient diagnosis

Addressing evolving informational and emotional needs

Delivering practical, patient-centric, multichannel support

Nurturing collaborative care from joined-up HCPs

Demonstrating value to payers

You can see an extract of the Ashfield presentation below. Please get in touch if you would like to arrange a presentation of the full deck, including patient videos.