Welcome to Teddy’s website.

Alexander and I created this site to keep friends and family updated on our little man’s progress.

Teddy’s story is more than just Menkes- it’s about trusting your gut as a mother, struggling to find strength to live another day, and how friends, family, and even strangers can lift you up in the worst of time.

Please share this with everyone you know because Teddy was put on this earth for a reason- and he’s not going to leave without making a difference.

We appreciate your support and words of hope and encouragement during this time when it matters most.

23 Comments

This website is amazing! You and Alex are amazing! Teddy is amazing and so lucky to have you as his parents! I am so moved by your strength and courage. Because of you 10s of thousands of people now know what Menkes is and that number will only continue to grow. Simply incredible. We love you Fish Family.

Mary, Alex and Teddy, We think about you all every day and the fight you all are fighting. Teddy is an amazing little super hero, whom I look forward to the FB and Instagram photos of his handsome smile every day! Word can not express the heartbreak I felt when you told me, I remember that morning like it was yesterday. I tell your story to every person I can to help raise awareness in hopes that it brings a cure sooner rather than later. We hope to be able to make a trip to Boston after the little one arrives as we miss you all dearly!! Alyssa was playing with her little doll “baby Teddy” the other day…carted him around with her everywhere. You all are loved so much and have thousands of prayers going up for you daily!
We love you guys, huge hugs to all 3 of you!!!!

Just a quick note to say WOW what a site this is!!! Teddy you warm my heart with every smile and those eyes!!! I pray that God will Bless you all each and everyday and hold you in the palm of his hand during the difficult times.!

Mary, Alex, and Teddy
While I don’t know you personally, I follow your blog like I do- I even find myself telling people about your handsome Teddy! Having a son only a week younger than your precious baby, I can not fathom what you are going through. You show amazing strength even though every day is an emotional battle for you. Through your hard work, you certainly are doing what you set out to do- spread awareness about this terrible disease. I see it everywhere! Please know I think if you often and I am wishing you strength in the days to come. #teamteddy #fumenkes

Mary, Ales and Family,
I have been following your story and want you to know how sorry I am for your loss and heartache. You, Teddy and your family have been an inspiration to so many people… people you know and so many that you don’t know personally. Your mission to love Teddy to the fullest, and spread the word about the terrible Menkes Disease has been spread far and wide… and has inspired so many!! What a wonderful testament to the sweet and beautiful son you have to hold in your heart forever.
I will never forget you all and admire your mighty strength and furious fight through this heartbreaking journey!!

As a fellow family member who knows the heartbreak of Menkes, my sincerest condolences, hugs, love and warm thoughts are headed your way for always. Teddy’s strength, happiness, and wonderment amazed everyone around him, even those who had little knowledge. Such a tiny little hero, with a big lesson, and an even bigger heart. My warmest thoughts to you all at this time. We WILL beat this one day, and Teddy’s memory and legacy will always be a part of that. My love to you all.

Oh, Fish family. I am so, so sorry about the loss of your sweet baby. Though Teddy wasn’t with us for long, the legacy he leaves behind after just over a year on this Earth is one that will never be forgotten. His precious smile has melted hearts worldwide and brought awareness to a disease that many had never heard of before. Please know that you are being prayed for and thought of during this time. Fly high, sweet Teddy. You are a super hero to us all.

Mary, God bless you! Super Mom of Super Teddy. I really love him. No words have been created that will console right now. But you know how you leapt tall buildings for Teddy and destroyed Menkes obstacles that weighed him down. He gave you love and joy and you gave it right back to him. The fact that you shared him with us speaks to your generosity – we all love him. We all watched him and prayed for him and stood beside him. But no one like you Mom – Super Mom. I shall continue in prayer for you and for your family. The angel is now in Heaven and feeling no pain. I shared the news at work and we will be contributing to the Teddy Fund. I know Teddy will not be forgotten by any of us Mary, and neither will Alex and you. Deeply and warmly I hold you close. God bless you.
Kaye

A week later my thoughts are still with you and your family. Although, there no words to express how sorry I am for you loss I wanted to say thank you for sharing Teddy’s story. Your strength and love for your super hero is truly inspiring in so many ways and I will never forget you or your sweet boy. Sending love your way from Colorado.

Good afternoon! I from Russia. I ask to change for grammar, I write through the translator because badly I know English). Your family is fine! At our son suspect Menkes’s syndrome ((((I read your records I represent that waits for us… It is very sad ((. Happiness to you and forces! ! !

Thanks for another wonderful article. Where else could anybody get that kind of information in such an ideal way of writing? I have a presentation next week, and I’m on the look for such information. gaaaeggfaeaf

I HAVE A 27 YEAR OLD MENKES SON. HE IS THE LIGHT OF MY LIFE AND HAS BEEN EVERY SECOND OF HIS LIFE. I FEEL VERY BLESSED AND HONORED TO BE THE MOM OF SUCH A BRAVE AND SPECIAL BOY. TEDDY IS BLESSED TO HAVE SUCH WONDERFUL AND LOVING PARENTS.
PRAYERS AND HUGS FROM CHRISTOPHER AND MYSELF.