Trigeminal Neuralgia Support Group

Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.

symptoms after microvascular decompression

Hi all,
As I already wrote in another post I am one of those rare folks who had complications following my MVD surgery. Original surgery was on June 14th...4 hospitalizations later I had a surgical repair done. So here I am 4 weeks after the 2nd surgery. I am doing so much better but am wondering how long I should expect to have pain in the back of my head. It is in the same area where I have numbness which the doc tells me I will always have. It's not really a headache but I am sure it is from the surgery...would like to hear what others have experienced.

Also.......still having twinges of TN pain....for now it looks like I may need to stay on my meds....disappointing to say the least!

Hi, cargra54,
I am so sorry to hear about all of your complications from surgery. I had surgery Aug. 30th of last year. I didn't have any complications from surgery, however, I did have a headache that lasted off and on for about 2 weeks, and the numbness I had above my ear and around where my incision is, lasts for a long time following surgery, I would say at least 9 months. I still have a &quot;hollow&quot; like feeling above and around my ear.
I started getting those &quot;twinges&quot; about 5 months following my surgery and those &quot;tingling&quot; sensation's around my nose about 3 months out. My surgeon told me then, to stay on a small amount of medication( unfortunately this will probably be permanent) and the numbness I have in my tongue and lips will be to. I do not have the numbness all the time though. I might mention that I did get a dull headache when I started decreasing my medication. I know staying on the meds is very disappointing, I was very upset, but, I have not had that horrible TN pain since surgery, so that means a lot to me.
Take Care and God Bless,
Linda

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