Monday, April 21, 2014

A Day in the Life of a Not So Sick Kid

Today started at 6 am when I woke up and got dressed with one eye closed and then woke up the Chipster.

After a quick stop at Dunkins because well

I run on Dunkins

We started our two hour drive to CHAD which is the children hospital where all I his specialists are.

If you are a new reader Chip was born with a cyst on his brain stem and as he grew his brain stem as well as his optical nerves grew around it making it near impossible to operate on.

That big white spot...yeah not supposed to be there.

For the past two years we have gone to numerous doctors appointments and even did a stint in the PICU lasy September.

So one we went to a long day of doctors appointments and his MRI.

He got all suited up

Then we waited and played

And played

And played

And finally we saw the doctor. It was a lot of the normal asking about his balance irregular eye movements issues with throwing up and his immune system. Then the doctor showed me his results from his MRI

That's right...it's just...gone.

He said sometimes this happens and that's why they go undiscovered in so many people.

It still has some reminents and some excess fluid but nothing of concern.

His optimologist said there was signs of being far sighted which may have been caused by the nerves being stretched but could also resolve itself over time.

I honestly don't even know how to react. I think I have worked so hard to emotionally remove myself that I can't even been properly excited or relieved.

Either way this news as well as a morning at CHAD has been pretty overwhelming and has made me make a pretty big decision.

My worst nightmare is anything ever happening to my children! I can't even begin to imagine how scared you must've been!! What a great blessing that it is gone!!! So happy for you and that cute little man!!!

What wonderful news! I'm so happy for you! If it makes you feel better, it's completely normal to feel distanced from news like this. Don't be surprised if it hits you in a couple weeks or months (or it might never and that's ok too).