This is a blog to chronicle the fabulous life of Connor Robertson. Despite the medical challenges that Connor faces at the moment he is a fighter. As his devoted & loving parents we want to see Connor enjoy all the adventures of life. With the wonderful support & love of our family & friends we intend on giving "our little bug" every opportunity in the world. We invite you to join us as we experience the journey together. May God be glorified in our chronicle of Connor's Adventurous Journey!

Wednesday, November 04, 2009

We're Home!!!

We are very happy to be home after our hospital stay. Connor had a very difficult night last night keeping his oxygen levels appropriate. There was a pretty big scare between 1-3am, but after he got some really good coughs out, he was able to breathe a lot better! The ICU staff and doctors were considering transferring us to the floor in the middle of the night and then the oxygen problem happened...that kept us on the unit through morning rounds. I really had to fight hard to get him released to home, but I finally convinced them that he would be much better off at home recovering than being vulnerable in the hospital to secondary illness.

I have to say, we are exhausted and are in need of sleep. You never get a good nights rest in the hospital, and last night was no exception. Please agree with us in prayer that Connor's pain would be minimal. He is such a trooper!!!! He is taking Tylenol every 4 hours and rotating Tylenol w/Codine every other dose. Since we have been home he has been playing so good with little agitation. We thank the Lord that he is doing much better than we anticipated and we trust that this will continue!!!

I will update again in a couple of days and let you all know how he is recovering.We are all hoping for a good night of rest tonight!!!!

Happy Thanksgiving Robertson Family. I see Connor had a successful surgery but I don't see any more posts so I will assume that no news is good news. I hope you are all doing well and are staying healthy during the cold and flu season. Have a great day tomorrow and I hope Connor will try sampling a taste of some of the Thanksgiving feast on his tongue. I remember working with Brent and freezing a whole tray of little tiny spoonfuls of baby food that we would thaw out one at a time so we could work with him to have a bit of food in his mouth. Anyhoo..blessings to you all. Love Susan (and the whole Emery gang)

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About Me

Hi my name is Connor Scott Robertson. I was born on January 11, 2006. My daddy is a pilot and I think that is so cool. My mommy gets to stay home with me which I think is super neat because we snuggle and cuddle alot. I was born with a special set of circumstances that require me to get some extra special attention from my doctors. I have Down Syndrome and a heart defect called an AV Canal. I have had a pretty eventful 1st year of life. I have been hospitalized most of the time and have spent alot of time in and out of doctors offices. Even though I have had a lot of difficulty so far, I am quite a fighter. My folks say I can do anything I put my heart and mind to and I believe them, because I am fighting really hard to become a big strong boy. Would you all take the time to say extra prayers for me? I know that God listens to our prayers and I believe he will answer our prayers to bring healing to my body. Can't wait to meet you all and have you watch me grow to be a mighty man of God one day.