Living with Haemophilia

Peter Jones

A new and heavily updated edition of the definitive guide for sufferers from haemophilia

Provides valuable advice for both sufferers and those living with them

Attractively illustrated, and compassionately written by the world authority on haemophilia

Living with Haemophilia

Fifth Edition

Peter Jones

Description

'Living with haemophilia' has established itself as the complete guide to haemophilia and related disorders. Written primarily for affected families, the book also provides a useful and up-to-date guide for doctors, paramedical staff, including nurses and physiotherapists, and teachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis, and the prospects for a genetic cure. Other coverage includes: Sex and family planning; Childhood with haemophilia; Education and employment; Sports and travel; Previous side effects of treatment including HIV and AIDSSensitively and clearly written at an appropriate level for those with haemophilia, their families and friends. This book aims to dispel the myths and raise awareness of the realities of haemophilia. It takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life. He addresses all the questions that those with haemophilia or those caring for them need to know the answers to, with humour and genuine concern. He has worked with those affected by it for over 30 years and this book contains his wealth of experience.

Living with Haemophilia

Fifth Edition

Peter Jones

Table of Contents

Preface 1. Haemophilia 1. What is haemophilia2. Growing up with haemophilia2. Medical background 3. Bleeding and clotting4. The causes of bleeding disorders3. Treatment 5. When and what to treat: bleeding episodes6. What to use: therapeutic materials7. How to treat: home therapy, prophylaxis, venepuncture8. Physiotherapy9. Surgery4. Problems 10. Inhibitors11. Side-effects of treatment, including transfusion-transmitted infection12. Coping without treatment: the developing world5. Families with haemophilia 13. Keeping healthy14. Planning a family15. Towards a career: education and employment6. Towards a cure 16. Towards a cureAppendices A. Background informationB. Products containing aspirinC. A Charter for people with haemophiliaD. History of haemophiliaE. World federation of hemophiliaIndex