We first shared Sara’s story, ‘#EFFYourBeautyStandards Sara Geurts’; Living with Classical Ehlers-Danlos syndrome (CEDS),’ last year. Sara’s incredible journey about living with Classical Ehlers-Danlos syndrome (cEDS) has continued to...

A few of my friends have shared this article with me, but it took me a few days to finally read it. It’s often hard for me to read everything on EDS because the EDS Wellness’ projects have been all-consuming lately and I haven’t had much time for...

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty’s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health...

“I’m often asked why I push myself so hard. Why I go all out putting on recitals, plays, making costumes and props…

But it’s more than just raising the bar.

It’s exhausting to take a shower. It’s painful to walk through the grocery store. I get winded by just walking out to the mailbox. Cooking is a tedious task that takes up a lot of energy. Pulling laundry out of the washing machine feels like an intense workouts.

If it’s worth waking up in the morning, and getting it done, then why not do it SO WELL you’ll be proud of it. If it’s worth doing at all, it’s worth doing it right. Why waste valuable energy on something, if you’re not going to step back and feel accomplished??

Meet my friend Ashley. Her husband found me on Instagram about two years ago, and we’ve become close friends ever since. However, two factors were missing from Ashley’s ability to improve – a good healthcare team and belief that she can. Well, she...