Hey guys it has been a while since i have been on here, some days are ok and some are not ok. I made a trip to my grandkids they live in MO. Been here about 2 weeks and have been doing better only 2 real bad days. The babies are 4 and 1, gluten has bound to be here but they kept a hyla water filter vacuum going quite alot. When I visited my father in Arizona i did pretty well also and was gone 10 days, ok here is the question, At home in my own home which is a new trailerhouse, I get sick almost everyday, and never feel like doing a thing, not even visiting my friends,afraid i will become ill at there house, and not be able to get home. I still am not driving, in too much pain and misery. I am wondering if there could be something in my home that is making me ill I do have lupus of the skin and DH and celiac of course but my home is clean and gluten free. which is not the case when i visit family, my husband thinks i am either crazy or just major depression. I have been gluten-free for about 6 months, Please help and give me some advise.

I recieved my results can anybody figure this out?tissue trangluteninaseab iga 64
endomysail ab iga screen 0.5
gladin peptide 0
immunoglubin a serum 222
There was nothing to go by no within normal limits
Now what?
thank you again doc never went over my results had nurse call me and she didnt know anything about them just to make a appt for march

The dr's nurse called me last night said, labs normal, endo normal, didnt say anything about the biopsys. Just stay on the gluten-free diet for 4 months and come back and see him in march! Didnt have any other info for me. I asked her to send me my reports but she never said she would just got off the phone. Going to call today to re request my lab and biopsy reports.

Has my biopsy done on halloween and still have not got my biopsy report but i did get the initial report that said localixed mildly erythematous mucosa
Second part of duodenum hyperemic
makes no sense to me any help here would be helpful thanks

No i am still on the gluten-free diet. Still feeling well today (thats 3 days in a row)
I dont know if he will find anything on the endo after 3 months on diet but he said to stay on diet
Right now just happy to be able to get out of bed!!!

Hey everyone just wanted to get you guys up to date. My dr finally returned my call last night at 10.30 pm.
Said i still tested positive for celiac disease but my IGA is still really low. Now back in for more blood tests and another endo really don't like the idea of yet another endo but what do you do?
Feeling somewhat better today, YES I AM OUT OF BED !!!
Think I will take myself to the store and get something good to eat
Barb

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Celiac.com was founded in 1995 by Scott Adams, author of Cereal Killers, founder and publisher of Journal of Gluten Sensitivity, and founder of The Gluten-Free Mall, who had a single goal for the site: To help as many people as possible with celiac disease get diagnosed and living a happy, healthy gluten-free life!