Monday, January 14, 2008

I am so sorry that I haven't been updating like I should. It's just been a busy year so far and I haven't had time to do a lot of things I need to. However, I will try to update here and go from there.

In the "brain front" things have been going as expected although I have made some strides in trusting my neurosurgeon even more. I am even more comfortable with him as time passes and truly believe that I can trust him with my head and life. That's saying a lot because it's possible one day this will be reality. He truly is fabulous and one of the few doctors I know that will actually return calls to the patient himself to make sure it is totally understood. That does a lot for someone going through a situation like mine.

In other medically related news, I actually had three medical professionals make me cry last week but all were in a good way. It was just how much they truly care for me and it took me at a time I really needed to hear it so they were all good tears. :)

The more things have progressed with my diagnosis, the more blessed I realize I am to have a therapist that I click very well with. He is very much on the same line as my Neurosurgeon, chiropractor, and gyne in terms of the best in the business. He has done some amazing things with me to pull me through this and I owe him so much in that respect. I am just very glad to be able to call him a friend.

I think that sums up the medical issues from the last few weeks. Outside of non-tumor related "check-ups" nothing new took place. I am working now on getting the scheduling sorted out for my February MRI. This will be MRI number four when it is finally scheduled. We'll see if it gives good news or bad.

Beyond that we are enjoying several dances already in the new year and getting lots of good projects finished. I can't complain at all with where things are heading in our fun time.

I do, however, need to break into a small set of sad notes. Julian (a little boy I talked about in a previous entry) is not doing well at all and it is believed that his journey here will be over soon. Please keep him and his family in your prayers for either a miracle cure from God or a safe and quick entrance to be with God. Also, David from 38lemon which is a link on the right side of my page, has been diagnosed with a Grade 4 GBM and is about to embark on a fight that will take him through radiation and chemo in attempts to buy him some more time. David's site has been a HUGE source of information to me and has given me answers I have been unable to find elsewhere. He is an amazing man and I wish him all the best on this journey. I highly encourage anyone that has questions, about either what I am going through or what my own journey may include, to read this journal. He states the pure and simple truth and says much more eloquently many of the things I think and feel. Please keep them both in your prayers.

Ok, I've got other things to do now. I will try to get back to daily updates. I promise. Some time in the near future you will understand what has been going on and I can fill you in on everything.

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My Story

So you've stumbled across my blog by accident and you are wondering what is really behind this blog. I can help you catch up quickly. In short, my name is Amy, As of 2000I am years old, happily married to my hudband,John, for 12 years, and have a 12 year old son. Oh, I was diagnosed on August 22, 2007 with a brain tumor.

All the important things (without my daily ramblings) can be found under the heading of beginnings and I would also recommend Updates. You can quickly see them all by clicking on those links. I hope this helps you get caught up with my world.

You can read my posts on surgery to read about surgery in posts written by me during my stays in the hospital and those updated after the fact to fill in all the holes. Following surgery and the discovery that my brain tumor was a Grade Three Anaplastic Astrocytoma, I went into radiation. This was not an easy decision but you can read about it and my decision process in radiation. I did begin having seizures in 2008 and issues with Hydrocephalus/regrowth in 2010/2011 and then chemo in 2011 where I am cuurrently receiving Avastin and the steroid Decradon.

I hope this blog can help others going along the same journey as me. Remember you are not alone.

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DISCLAIMER

I wish to post a disclaimer that I am NOT a doctor nor do I play one on TV. Therefore, nothing mentioned in this blog should be taken in the place of your own medical professional. What works for one person may not be the best solution for another. If anything I do in my blog can be brought across, I hope it's that you have to take your life and medical care into your own hands and use all the wonderful tools you have at your resources.

My experience with my brain tumor will not be the experience you have because no two tumors, just as no two people are alike. However, if showing my experience to you can help you on your journey, then I have accomplished a huge goal in my life and that is to help others.

Remember that attitude, support, and God make up 90% of the battle!!! always believe in the positive. god spEED!!!!!