The last 3 years we’ve hosted a Huxman Run 2 Sweat to benefit the National Foundation for Ectodermal Dysplasias (NFED). Our children, Tyler (13 yrs) and Grant (6 yrs), have had life changing connections and resources because of this non profit organization and we want to give back to them.

This year we have changed the format slightly and are doing a Worldwide Virtual Run from October 1-31. What does this mean? ANYONE can participate ANYWHERE at ANYTIME in October. We’ve appreciated your participation in the past and hope you and some more of your friends will join us this year. Just fill out the online registration form. We will mail you your dry fit shirt and you can then find the time to run/walk anytime during the month of October –

Want a great way to get some exercise, have an event to get in shape for, have some fun with friends AND support a great cause in the process – the National Foundation for Ectodermal Dysplasias (NFED) . The WORLDWIDE Huxman Run 2 Sweat Virtual Run is right around the corner. The NFED is VERY dear to our family as they do so much for our 2 children, Tyler and Grant affected by EEC Syndrome, as well as our family. As a non-profit organization, any amount of money directly benefits the families – and that is where all the money from the Huxman Run 2 Sweat goes – directly to benefit families.

So …… go to Huxman Run 2 Sweat to print out a registration or send me a message and I can email or mail one to you. We also have the incentive this year – Run for a Cause —- if you pledge an additional $100 as a runner, you will also receive a sweatshirt.

Let’s make this the most successful Huxman Run 2 Sweat ever!!!! Feel free to share this on your wall so the word is spread everywhere. Thanks

Tyler

Why Run 2 Sweat?

When most people run, there is an expectation that sweating will occur. What if when running, a risk of overheating occurred rather than sweating? This is a reality for some children, including Tyler and Grant Huxman. Tyler and Grant both have EEC Syndrome (Ectrodactyly, Ectodermal Dysplasias Clefting Syndrome), which is very rare. EEC is one of over 150 different types of ectodermal dysplasias which affect about 1 in 10,000 births and are inherited disorders that involve defects in the hair, nails, sweat glands, tear ducts and teeth.

The purpose of the Huxman Run 2 Sweat event is to raise awareness as well as funds for the National Foundation for Ectodermal Dysplasias (NFED), a non‐profit organization with a mission to empower and connect people touched by ectodermal dysplasias through education, support and research. The foundation also provides financial support, advice, guidance and research into ectodermal dysplasias. All of their funding comes from private donations and grants. They receive no federal funding.

Grant

The NFED is valuable to many families dealing with ectodermal dysplasias , including the Huxman family. Helping to raise funds is a way to give back. Please consider helping out in any way you can, either by participating in the run, donating to the cause, or volunteering to help with the event on October 5, 2013.