She devoted lots of her time working as an advocate for the rights of people with disabilities; she worked part time as well as being heavily involved in volunteering.

She was denied a heart-lung transplant by the Stanford University School of Medicine in California because she had Down syndrome. She then (along with supporters) began a very public battle, gaining nationwide attention arguing that Down syndrome should not be enough to automatically deprive a patient of a chance to survive, this resulted in her receiving the transplant (1996).

She became the first person with Down Syndrome to ever receive a heart-lung transplant.

Jensen, an activist for disabled rights, served as president of a Sacramento disabled-rights group and was invited to watch then-President George Bush sign the Americans with Disabilities Act in 1990. Despite her disabilities, Jensen lived on her own, graduating from high school and busing tables at the Capitol cafeteria.

There doesn’t seem to be a lot of information about her or her story online, but I did find this report, which is taken from NYT and US News articles.