Caregiving: Defining Family

Watch the presentation and learn more about defining what “family” is in caregiving and some wonderful insights about caregiving techniques. You will also find statistics, learn more about “new” family dynamics such as LGBT families and more.

What has helped Caregivers?

Information and Support Groups

Respite Services

Skill building interventions

Help of secondary caregivers

Assistance navigating health care system

Assistance interacting with health care providers

Open communication with the patient, family and healthcare team

Caregiver Support for Myositis

We have a closed Facebook group for Caregivers, Family Members and Friends of someone with myositis (Polymyositis, Dermatomyositis, Inclusion Body Myositis and Juvenile Myositis/Dermatomyositis).

http://www.facebook.com/groups/myositisfamilyandfriends

Share to inform your networks.

Join our email updates and newsletter

Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register

Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are key to helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage our fast growing organization.

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Join our email updates and newsletter

Subscribe to our general myositis-related email updates.
If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here.
To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register