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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, February 5, 2015

No rejection!!!!

We got word that Alex's biopsy came back clean. His new heart is happy in its new home and his body is happy to have it! Confused a little?? Sure it is, but making strides at coming back.

In fact....

Yesterday after a morning of blank stares and questioning glances.. I decided maybe we should play his IPad. This was a gift from Mountain America Credit Union, at the golf tournament Alex was a spokesman at. We were running through a couple of games and we came to Clumsy Ninja. I have never played this game before, completely clueless we start pushing buttons.. Some sort of add for a singing monster app comes on and we watch it and move on the first time.. Alex reaches up and pushes the button again. I was a little shocked by that but not totally as he had been swiping his fingers over it like a baby does. The same app commercial comes on again and Gator started to talk clear and controlled. "Ah, we must have to watch this in order to get the golden eggs". You could have picked my mouth up off the floor. It was though a light switch had been turned on.. The bulb was dim, but the light was slowly growing. He called me mom again. I can assure you it was just as sweet to my ears as when he was just learning as baby!! He still has a hard time with eye hand coordination and fine motor but with this small progress I can see that recovery can happen. He slipped in and out of understanding wanting to ask questions she couldn't form. I am sure that is terribly frustrating. Putting people in their proper roles is another thing.

He is still putting drainage out from his collection of fluid around his heart or pericardial sack. We will watch it and make sure it looks like it's getting better. More good news, he moved to the recovery floor! Papa Clawson has been with him today and he said they needed a moving van to get him up to his new digs. Hahaha!

The girls pray every night that his "new Heart will like his body and his body will like his new Heart". I will let them know this in the morning and they will be as thrilled as I am right now!!! That is Great! Of course the Little Breakthroughs of Gator are wonderful too. Fantastic! Prayers and Virtual Hugs All Around!