Raising Awareness

Noonan Syndrome is still not widely known let alone understood and this can still be true in the medical and educational fields as well as in the public in general. To tackle this, in addition to the activities mentioned above, we have:

· Circulated information about NS to 2000 members of the Royal College of Paediatrics and Child Health

· Supported two Rasopathy Study Days run in conjunction with the Genetic Alliance and Royal School of Medicine

· Co-sponsored an international study conference organised by the University of Cardiff into developments in the Rasopathies

· Worked with schools in the West Midlands to raise awareness and understanding of the condition

· Undertaken local work with 70 medical practices in Sandwell and the emerging local clinical commissioning groups.

Registered charity No. 1140671

Support for individuals and families affected by Noonan Syndrome in the UK