I’ve been unable to work full time for two years now. Coming up on a big and upsetting anniversary like that, I’ve been reflecting on everything I’ve gone through over the last two years. Luckily, I’ve made progress, especially in the past year. I am absolutely not where I want to be, but I am…

The everlasting question…what do I wear? First of all, I feel extremely lucky but also cursed to have gone to Catholic high school. In one aspect, I never had to worry about what to wear. Other than a few days a year for dress down day, choosing an outfit was never a thought that had…

POTS. What the heck is that? Whenever I tell someone I have POTS, lupus and fibromyalgia, they’ll usually tell me about someone they know who has lupus or fibromyalgia. They skip over the POTS comment completely. Maybe they think I’m having brain fog and just threw an extra word in there, like “hey, I have…

I’m starting to forget what sleep feels like. So what is there to do at 4am? Write. Often when a conversation starts with someone about being sick, they ask “are you ok talking about this?” and my answer is always the same…absolutely. I’ve been questioned a great deal about why I talk about my illnesses…

I was diagnosed with lupus in September 2011. I’m coming up on six years. I thought I had this thing somewhat under control. You know…the ups and downs and chronic pain I’ve learned to deal with…I knew what to expect and what flares entailed. I knew that my life wasn’t where I wanted it but…