"She was born with really short toes her big toes and the doctors just thought it was a birth defect. It took about 9 months for her to get diagnosed and we had never had heard anything like her condition at all. It was a really big shock.

"Slowly but surely her body is building another skeleton, it will eventually lock her body."

– Kelly and Ian Sanderson, Jasmine's parents

The disease is so rare little is known about it. Research at Oxford University suggests in three years a clinical trial could be available. However the family say they need another £120,000 to keep the research teams working on a cure.