News

The ULF received donations in memorial or honorarium for the following during the month of February 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Carter Bowman: Katie Bowman, Ken Monahan
Zane Dial: Martha Conlon
Dori Greene: Andrew and Carol ...read more

The ULF received donations in memorial or honorarium for the following during the month of January 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
MaryAnn Backenson: Bryon and Kathleen Backenson
Asher Fleming-Bloxom: Keith Yale
Ben Conley: Mary Jo ...read more

Buy tickets for a chance to win a Disney vacation for 4!
DEKALB, IL – February 1, 2018 – Support the United Leukodystrophy Foundation with the purchase of a Magical Memories Disney Raffle ticket. The winner of the raffle will receive $1,050 in Disney gift cards redeemable toward admission, food or ...read more

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2018.
Best, Thomas
Tom, age 50, proceeded in death by his twin brother Tim in 2008. Both who had PMD leukodystrophy, were adopted at age 6 weeks by mother Sharon Spears and her former ...read more

Spread the word about Leukodystrophy in your community AND support medical research with the purchase of our newest t-shirt design. Multiple colors and sizes available!
All proceeds will support vital medical research!
By partnering with Bonfire, we are able to fundraise as well as have the printing and distribution of the ...read more

The ULF received donations in memorial or honorarium for the following during the month of December 2017. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Blake Andrews: Kyle Roan
Phillip Andrews: Kyle Roan
Harrison Botta: Erik and Jennifer Botta
The ...read more

Every year, the ULF puts a call out to the leukodystrophy medical professional community asking for research proposals in need of funding. The number of grant applications have consistently grown in the past years, and this year was no exception.
Submissions from all over the country as well as internationally were ...read more