count me in on being worse w/ the pressure changes...especially when i was still in fla i noticed whenever the rain was coming i could count on my head to get so much worse...the rain in the cold hasnt seemed to bother it yet

DH is bothered by the cold more than anything. This is a man who could sweat by just saying the word -- Not anymore. Being cold makes him tense up and the pain gets worse.

We've taken to putting the electric blanket on the bed so he can relax while he sleeps. I turn it down when I get into bed, then later end up turning it off because I'm the one sweating (dog doesn't mind it though).

actually cold and/or pressure changes bother me the worst, I guess. Here in West KY, we dont have much snow during the winter, its more rainy and 35 degrees *shivers*. I stay cold and tense from about Oct. through Mid May.

Told my BF once that I'm looking forward to the hotflashes of menopause, cause then maybe I'll finally be warm for a change.

I found the barometer plays a role in my pain. If the barometer drops, I feel it. The greater the drop, the greater my pain. 1200mb or so is normal here and I am OK, but if it is lower than 1000mb, I can definately feel it. Lower than 950mb, Forget It, I am in bed and cannot move.

I don't know about the weather specifically... but I'm definitely sensitive to temperatures, indoors and outdoors. I'm constantly fluctuating between hot and cold. Hot tends to make me very uncomfortable and agitated, but cold is worse, making my muscles very tense and aggravating any pain.

I'm constantly wearing tons of layers in order to be able to deal with any temp.

The worst is when I end up with a kind of rapid cycling body temp, when I ping pong from hot to cold, over and over again, getting sweaty, shivering, tense, etc.

I am in the exact situation as c.s. I go from hot to cold and vice versa all day long. When my dh is here it drives him crazy. All winter long I did the same thing. Air on, air off and sometimes within a matter of minutes. I'll turn the air off and within a few minutes I'm so hot I have to turn the air on again.

I don't understand it but the only option I have is to keep adjusting the air.

I have several sweaters and sweatshirts that I'll rotate through wearing... but I always have one with me. My den is pretty warm because of all the computers in the small room and it's on the top floor. So if I'm there, I'm usually comfortable. Anywhere else, I'll have a sweater and a fleece blanket to bundle up with if I get cold. Then I just keep shucking or adding layers as needed.

My wife likes it cold.. and she loves to have the windows open for fresh air. Fortunately, she buys me nice sweaters and blankets to make up for trying to freeze me.

The NS I saw most recently explained why temperature is such an issue... At least for temperature sensation. He explained that touch sensory nerves enter the spinal cord and travel the cord on the side they enter from... Whereas temperature sensory nerves actually cross the cord before ascending. So if you have some abnormality in the middle (hellooooo syrinx), they end up affected. So often temperature goes sooner than touch or pain sensation.

The first neurologist I saw at the ER also explained that there's a tract that handles autonomic (regulating your body) functions... and that it can also be easily compressed resulting in trouble regulating your temperature. I wish I had the diagram she drew for me, I'd scan it in.... but I've since lost it.

Long story short, we're lame when it comes to temperature. Sweaters and blankets. Sweaters and blankets...

As for myself, any change in the pressure affects me. I always know that it is going to rain. The pressure starts to build up the back right side of my head and takes over my whole head and the rest of my day or when the rain starts to let up. I watch the weather hoping for a beautiful day every night. It just so happens that we are going to have 80 % chance of rain tomorrow. It's no surprise to me.... I've had a bad headache since 2 AM this morning.