Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

Darn headaches.....

I guess 2 days is the longest I can go without having a headache. I get so tired of waking up to the pain and pressure in my head! I am actually looking forward to having another spinal tap soon. Never thought I would hear myself say that!
I have an appointment with a NS in late Oct to discuss the lp shunt. Hoping all goes well. Still a little scared about it, but I want relief, so I am willing to have it done. I have the headaches frequently and feel bad often, but I don't have it as bad as some. I have to keep reminding myself of that. Other than pain meds not seeming to work and having one spinal tap go wrong,I guess I am lucky...... I have talked to many who have it so much worse. I continue to pray for those suffering with this illness and for a cure to be discovered.

I know what you are going through .I wa jut on the Headache clinic because of my headaches and so far its been a week and I have had 2 headACHES THAT DID NOT LAST LONGER THAN 15 MINUTES.The only thing I am doing is exercise and trying to lose weight becaue I cant tolerate the meds for pseudotumor and when the headaches started I got really depressed .Thank God my NO is so good he got me an appointment the following week for the headache clinic.I have to do a spinal tap for them and bring my last mri report in my next appointment..I am taking Elavil 10 mlg at bedtime ,Effexor 37.5 , 1 a day ,and vistaril and flexeril if I get headaches .you should ask your NO to see if this helps you .Good luck!

Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...

So my daughter, who will be 30 in a few months, says she thinks she has varicose veins, as she can't figure out what else it could be. Only in one leg, and is so bad it is hard to sleep at night. She is in excellent shape, really exercises a lot, and eats well... not at all overweight. Anyone else have any issues with this? I did find that it can go with PKD. She was reading that there are...

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