Ventriculomegaly at 10 weeks!

Hi everyone! I just found out yesterday that I am pregnant with twins and one of the babies has an enlarged head. My doctor thinks it is VM but is sending me to a Fetal medicine specialist in Dallas on Monday. I am really scared and haven't been able to find any information about this being found this early. If you have any information or advice to share please do. Thank you so much!!

Hi everyone! I just found out yesterday that I am pregnant with twins and one of the babies has an enlarged head. My doctor thinks it is VM but is sending me to a Fetal medicine specialist in Dallas on Monday. I am really scared and haven't been able to find any information about this being found this early. If you have any information or advice to share please do. Thank you so much!!

You can clearly see in the unltrasound that Baby A's head is larger than Baby B and seems misshapen. The second my doctor looked at it he immediately said he wanted a second opinion and they got me in for next Monday with the specialist. My dr. even called me later to make sure I was ok. I have had a lot of trouble with pregnancies. I have had 5 miscarriages, all due to progesterone issues. This pregnancy was a surprise because I wasn't suppose to be able to get pregnant anymore because my tubes were blocked. So my babies are holding on and right on track and that is with no progesterone injections. They are already little miracles and I desperately want them to be ok. I was already declared high risk from the second I found out because of my history and because my daughter was premature due to no amniotic fluid and preeclampsia. I am very worried about this pregnancy and would love any input I can get.

You can clearly see in the unltrasound that Baby A's head is larger than Baby B and seems misshapen. The second my doctor looked at it he immediately said he wanted a second opinion and they got me in for next Monday with the specialist. My dr. even called me later to make sure I was ok. I have had a lot of trouble with pregnancies. I have had 5 miscarriages, all due to progesterone issues. This pregnancy was a surprise because I wasn't suppose to be able to get pregnant anymore because my tubes were blocked. So my babies are holding on and right on track and that is with no progesterone injections. They are already little miracles and I desperately want them to be ok. I was already declared high risk from the second I found out because of my history and because my daughter was premature due to no amniotic fluid and preeclampsia. I am very worried about this pregnancy and would love any input I can get.

After my anatomy scan with 2nd pregnancy they told me that it looked like my daughter had "mild Ventriculomegaly". I had several high risk ultra sounds through out the rest of the pregnancy, and they never found a cause during that time. They said that it could resolve itself over time, or it could be Ventriculomegaly and we'd just keep an eye on the fluid build up after she was born with scans, or it could be something they were not picking up on the ultrasounds.
They did a ultra sound "on my baby's head" 1 day after she was born as a precaution. I'm so glad they did this!! Our baby looked normal, all her vitals were stable so nothing could have prepared us for what that told us. On the U/S on her head they saw what is called.."the vein of Galen Malformation" in laymen's terms it is a Rare and very dangerous Aneurysm. It effects up to 1 and 1 million births, it's not genetic(1 identical twin can have it and not the other). It just happens early in pregnancy. Nothing causes it.
The vein the aneurysm is in drains directly to the heart which causes heart failure in many of these cases. Other risks are hydrocephalus, stroke, brain damage, paralyses, and death. Thankfully we were aware of what my daughter had then, and tracked down the expert in my daughters condition. Where most Dr's may only see this a few times in their career if ever. This dr. in NYC has treated over 250 cases, is world renowned, and has extensive experience in treating VOGM. He also helped pioneer the surgery she has to cure her condition. They go though the groin with a micro catheter, and feed it up to the brain and use a medical super glue or metal coils to close off arteries that are feeding the aneurysm. It's not invasive because no cutting is involved..however still has risk.. It often takes several of these procedures to cure this. My baby is now 15 months old and 99% cured, and is expected to live a normal life:) She is a miracle! Her next and "hopefully last procedure" will be in 9 mths to 1 yr from now.
Our 1st baby was an IVF/ICSI baby due to male & female infertility so it was a miracle in itself that we conceived on our own with our 2nd baby. I hope I haven't scared you by sharing my daughters story, like I said her condition is so rare. Just make sure they do scans on your baby after it is born to rule out everything. They also had me coming in for non stress test weekly at end of my pregnancy.bit was annoying then.. But if my baby had started showing signs of heart failure or stress they could have picked it up. In our case.. Our daughter's fluid build up was due to a Huge aneurysm in the middle of her brain. Thankfully our daughter never needed a shunt because the fluid Stabilized and decreased after her 1st procedure.
We were thinking worse case that our daughter may end up with hydrocephalus and would need a shunt. Never could've imagined what that told us she had.
I will be Praying for you! I can relate to what your feeling because I was once told the same thing.., and didn't have any answers. Sorry for the info over load. Just know that Care very much.
Hugs

After my anatomy scan with 2nd pregnancy they told me that it looked like my daughter had "mild Ventriculomegaly". I had several high risk ultra sounds through out the rest of the pregnancy, and they never found a cause during that time. They said that it could resolve itself over time, or it could be Ventriculomegaly and we'd just keep an eye on the fluid build up after she was born with scans, or it could be something they were not picking up on the ultrasounds.
They did a ultra sound "on my baby's head" 1 day after she was born as a precaution. I'm so glad they did this!! Our baby looked normal, all her vitals were stable so nothing could have prepared us for what that told us. On the U/S on her head they saw what is called.."the vein of Galen Malformation" in laymen's terms it is a Rare and very dangerous Aneurysm. It effects up to 1 and 1 million births, it's not genetic(1 identical twin can have it and not the other). It just happens early in pregnancy. Nothing causes it.
The vein the aneurysm is in drains directly to the heart which causes heart failure in many of these cases. Other risks are hydrocephalus, stroke, brain damage, paralyses, and death. Thankfully we were aware of what my daughter had then, and tracked down the expert in my daughters condition. Where most Dr's may only see this a few times in their career if ever. This dr. in NYC has treated over 250 cases, is world renowned, and has extensive experience in treating VOGM. He also helped pioneer the surgery she has to cure her condition. They go though the groin with a micro catheter, and feed it up to the brain and use a medical super glue or metal coils to close off arteries that are feeding the aneurysm. It's not invasive because no cutting is involved..however still has risk.. It often takes several of these procedures to cure this. My baby is now 15 months old and 99% cured, and is expected to live a normal life:) She is a miracle! Her next and "hopefully last procedure" will be in 9 mths to 1 yr from now.
Our 1st baby was an IVF/ICSI baby due to male & female infertility so it was a miracle in itself that we conceived on our own with our 2nd baby. I hope I haven't scared you by sharing my daughters story, like I said her condition is so rare. Just make sure they do scans on your baby after it is born to rule out everything. They also had me coming in for non stress test weekly at end of my pregnancy.bit was annoying then.. But if my baby had started showing signs of heart failure or stress they could have picked it up. In our case.. Our daughter's fluid build up was due to a Huge aneurysm in the middle of her brain. Thankfully our daughter never needed a shunt because the fluid Stabilized and decreased after her 1st procedure.
We were thinking worse case that our daughter may end up with hydrocephalus and would need a shunt. Never could've imagined what that told us she had.
I will be Praying for you! I can relate to what your feeling because I was once told the same thing.., and didn't have any answers. Sorry for the info over load. Just know that Care very much.
Hugs

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