TOPIC: Having ITP and hate having to tell ppl about it

Having ITP and hate having to tell ppl about it
7 years 5 months ago #19106

My name is Jamie and I'm 20 years old and have ITP since I was 10 years old. Everywheres I go I have to be limited to what I can and can't do.And everytime I meet someone or with friends I need to explain why I can't do certain things. I just want to be able to have some friends that have ITP or had it to understand what I'm going thru and just to talk to. I have a fb
www.facebook.com/profile.php?id=640598241
if anyone would like to talk about it and if your going thru anything I'm here to talk.

Having ITP and hate having to tell ppl about it
3 years 1 week ago #53471

I find this to be a tricky issue. I have a separate disorder that prevents me from doing a lot of what most people can do. I generally don't say much about it, and just go about finding things I can do. People close to me do know, and even then I have to remind them of my limitations from time to time. Like Sandi I'm curious to know how ITP is limiting you? I don't find it has much impact on my life except for the frequent blood draw to check platelet counts. Maybe my other limitations already keep me away from anything that would involve platelets.

Having ITP and hate having to tell ppl about it
3 years 6 days ago #53538

Due to a separate problem, I had to abandon virtually all sports years ago. I know it's hard to lose something you enjoy or want to do with other people, but there are lots of other possibilities. The translation to other activities requires some trial and error before you find one you really enjoy, but it's worth the effort. I use Meetup.com, library notice boards, and local schools to find groups that are doing things that sound appealing. This has led to a lot of interesting and enjoyable activities, none of which involve the things I can't do.

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