I would just like to start by saying thank you to everyone who has donated, sent lovely messages of support and are planning events up and down the UK and Ireland to raise money for Niamh. In fact there are amazing things going on all over the world to raise money for Niamh's Next Step and The Neuroblastoma Alliance. The world has fallen in love with our little girl, and to be honest I don't blame you. Niamh had a series of tests last week which included a bone marrow biopsy and 2 skeleton scans known as MIBG scans. She also continued with her 3rd cycle of chemotherapy (Temozolomide & Irinotecan) as well as starting her 1st ever Rainbows, which she loved. This type of chemo had a 50-50 chance of working and unfortunately the scans showed it had not. :( Totally gutted but in our family spirit we will #keepfighting Yet more trips to hospital for blood and platelet transfusions, more community nurse visits to give drugs at home, more blood tests and more time off school. We will still #keepfighting. We now have to turn to a much harsher but hopefully more effective chemotherapy called TVD (Topotecan, Vincristine and Doxorubicin). This is given over 7 days. A day patient for 4 days and then an inpatient for the final 3 days. As always the amazing team at the JR Hospital in Oxford will try to keep the side effects to a minimum for little Niamh. She will have 2 cycles of this in February and March and they will re-stage again in April. We have also been refered to a new Consultant Oncologist in London for the next part of Niamh's treatment after chemotherapy. This treatment is called MIBG Therapy. To be honest it’s a whole new scary ball game all together and we will find out more once we have a meeting with Niamh's new consultant. For now our little family are carrying on with life as best we can with my favourite quote so close to our hearts. However hard life may be, what matters most is that you never, ever give up. #keepfightingChris (Niamh's Dad)

It is an amazing journey you have all been on. Keep your family spirit fighting on. We are all behind you in our hearts and by the end of this evening at Wollaston Lodge there should be quite a few empty purses too! x

I also would like to know if there are any community groups that I could join in order to meet other single parents around town. I would love to know what childcare costs are for before and after school care is too. Any advice or comments would be greatly appreciated. Thanks in advance!