Information for patients, their families and helpers

Introduction

There is as yet no cure for adult Refsum's disease, but good management of
the condition - and especially paying careful attention to diet - can make
a lot of difference. Some of the damage which can be caused by adult Refsum's
disease is progressive and incurable, which means that catching it as early
as possible, getting good advice, and following that advice can make an enormous
difference to a patient's quality of life.