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With no way of securing the extra money required for the essential equipment Mrs Hall posted a late night Facebook "rant" on November 13 railing against the hopelessness of the situation.

More than £4,500 has been raised in order to buy Lily essential equipment

Since then, 98 backers have donated between £5 and £450 each to Lily's cause via a crowdfunding page and Mrs Hall has expressed her disbelief at the generosity of the donations which have now reached £4,500.

Mrs Hall said: "The page itself was actually set up in around December 2015 as friends and family had been asking for a proper way that they could donate towards all of the equipment that Lily needs

"But the page has just spiked by about £4,000 in the last four days ever since I posted a late night Facebook rant about the cost of the equipment.

"It's just been overwhelming really. When I posted the 'rant' we were just at a really low point, we didn't know how we were going to manage and couldn't see any way at all of getting the money.

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"We just didn't know how we were going to make this Lily's home as well rather than just having her confined to one or a few rooms."

The family have found disability grants are awarded on an all or nothing basis, leaving them unable to access funds that could have been used to buy equipment such as a specially designed toilet and bath.

Laboratory tests have indicated that Rett syndrome may be reversible and since 2013 fundraising efforts in Lily's name have raised more than £60,000 for the charity Reverse Rett in the hope of finding a cure.

Kerry Hall says she is overwhelmed with the support her daughter Lily has received

But with Lily's personal needs now rising it has become necessary for fundraising efforts to focus on her own care.

Mrs Hall said: "Lily is five now and she is getting bigger and heavier it's difficult for us to carry on being able to move her around the house easily.

"The bath and the toilet that are suitable for her would cost around £4,000 then all of the work that would be required to turn our current living room into her bedroom, such as installing runners on the ceilings and harnesses, would cost roughly £7,000 to £8,000 [which the family are applying to get in a grant].

"She has obviously grown out of the potty so her own toilet will help to give her a bit of dignity and the bath is important as it helps with her muscles which will let her keep her ability to walk a bit when we support her."

The family's story has clearly touched both friends and strangers as messages of support to the family on their GoGetFunding page have flooded in along with donations.