Zuton Lucero, with her daughter Ashantay, 8, holds a picture of her 9-year-old son, Zumante, who died of asthma in July after a state-benefits error denied him his prescription coverage.

Zumante Lucero struggled with asthma since he was a baby. In March, his mother went to fill his Advair prescription, but it was denied. Months of calls followed to Human Services to no avail. The boy, 9, got progressively worse and died in July.

Advocacy lawyers who met Wednesday with the Colorado Attorney General’s Office hold up Lucero’s story as an example of how serious the problems are with the state’s $243 million computer system that is supposed to manage benefits — and the county human workers behind it.

“The human system fell down,” said Ed Kahn, a lawyer with the Colorado Center for Law and Policy, who is among a group of local and national lawyers weighing a lawsuit against the state for delays in getting food stamps and Medicaid benefits to people. “They are responsible for this kid’s death.”

The Colorado Benefits Management System is run through county human services offices and manages medical and food-assistance benefits for everyone in Colorado. Since its 2004 installation, the system has been beset by problems.

Lawyers advocating for Colorado’s needy sat down with state officials Wednesday to discuss the problems that have the lawyers weighing whether to sue the state as they did in 2005 over similar issues.

“They presented us with some new information, and we listened carefully,” Kahn said. “We hope to make a decision in relatively short order about how we are going to move forward.”

Lucero, who works as a paraprofessional in Denver Public Schools, said Wednesday that she will continue to tell the story of Zumante’s death “to enough people so that it won’t ever be anyone else’s story.”

In addition to working with the advocacy lawyers, she has hired a personal attorney and is exploring a lawsuit against Denver.

Zumante had struggled with asthma since he was 3 months old. But when he was 6, the condition became serious enough for his mother to apply for benefits under Social Security, which also entitles him to Medicaid.

Andrew Lieber was Zu mante’s physician since birth. He said the boy’s lungs were severely inflamed, and his twice-daily medication, Advair, helped control that.

Last March, Lucero went to fill her son’s prescriptions at a Walgreens near her home in Montbello. A worker there said Zumante didn’t have prescription-drug coverage anymore.

Lucero says she called Denver Human Services every three days for four months trying to get him drug coverage. Each time she called, an automatic computer report was issued and sent to her house usually showing that all of her children — including Zumante — qualified for Medicaid.

But even when she brought in the reports to Walgreens, she was told the computer system showed he wasn’t eligible for pharmaceutical benefits.

Throughout months of frustrating phone calls to Human Services’ call-center operators, which often left Lucero in tears, Zumante’s health weakened. She managed to reach her caseworker only once. The caseworker told her in March that the problem had been resolved.

Just why the system showed Zumante wasn’t eligible for the prescription benefit — when in fact he was — still is not clear.

The little boy, who loved karate, drawing cartoon figures and riding bikes with his brothers and sisters, was often caught in spasms of panic because he couldn’t catch his breath.

He went to the emergency room in May and June when the inhalers and nebulizers Lucero carried were not enough.

During the June trip to the ER, Lucero told doctors she wasn’t able to get him his Advair.

They gave her some samples. When she told Zumante he was going to get to start taking his medicine again, the boy was so relieved he cried.

But it was too late. The medicine works progressively to keep inflammation down, Lieber said.

On July 16, Lucero was home and heard Zumante call her name from upstairs. He was on the nebulizer and told her he couldn’t breathe. She called an ambulance. While she was waiting, Zumante lost consciousness.

She cradled him in the front yard while she waited to hear sirens. By the time paramedics got him to Children’s Hospital, he had been unconscious for more than 10 minutes.

For four days, he was kept alive on a ventilator, but when Lucero decided to disconnect it, he died within a few minutes.

Denver Human Services officials said the agency “feels the death of any child as a tragic loss,” said spokeswoman Revekka Balancier. “And our department tries very hard to prevent these kinds of tragic accidents.”

More in News

Police who find suspected drugs during a traffic stop or an arrest usually pause to perform a simple task: They place some of the material in a vial filled with liquid. If the liquid turns a certain color, it’s supposed to confirm the presence of cocaine, heroin or other narcotics.

Doctors in Syria’s rebel-controlled suburbs of Damascus said Wednesday they were unable to keep up with the staggering number of casualties, amid a ferocious bombing campaign by government forces that has targeted hospitals, apartment blocks and other civilian sites, killing and wounding hundreds of people in recent days.

The Supreme Court ruled unanimously Wednesday that whistleblower protections passed by Congress in the wake of the financial crisis of 2008 apply only when those alleging corporate misdeeds bring their information to the government.

A prominent white nationalist is suing Twitter for banning his accounts at a time when social networks are trying to crack down on hateful and abusive content without appearing to censor unpopular opinions.