This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

It took ages but I was eventually diagnosed with vestibulitis a couple of years ago. I was suffering from unprovoked pain on a regular basis and sex was completely out of the question. It was miserable as you can imagine. I've eventually managed to get the daily discomfort (minus the sex issue) pretty much under control thanks to a brilliant physical therapist who identified tight muscles as the root of my problem and taught me about deep tissue massage. I did do some work with dilators while seeing her but then went through a bad spell of anxiety which meant the dilators got buried in the back of a drawer. I just couldn't deal with the added stress of trying to use these as well as overcome the anxiety issues. For the first time in almost a year i plucked up the courage yesterday to try inserting the smallest dilator. I managed with very little discomfort which i was over the moon about! Today though i feel quite sore and everything feels tingly. I'm freaking out a bit as it reminds me of UTI symptons. There's no burning or urgency though so my logical mind is saying that its probably just my vaginal muscles reacting to having something inside after such a long time! Has anybody here experienced this after using a dilator for the first time or moving up a size? I shouldn't overreact but this whole process has been so emotionally draining that any sign of pain makes me feel worried and emotional. Thanks for any advice or words of wisdom x

I understand the freak out. Whenever I feel tingly/itchy and sore I get terrified that I have a yeast infection which is what I think caused this all. My PT told me that those symptoms are normal when doing new stretches or using the dilator since your skin and nerves are adjusting to it. I'd wait a couple days before worrying about a UTI. In the meantime you could do preventative measures like drinking cranberry juice.

Thanks so much for this! It made me feel very reassured. The soreness disappeared after a couple of days so it must have been my muscles and nerves overreacting. It's difficult not to freak out when things like this happen though!