We need your help!

As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!

Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference. Read more about ways to support people with Fabry disease.

Sunday, August 02, 2015

"We cannot live only for ourselves. A thousand fibers connect us with our fellow men; and among those fibers, as sympathetic threads, our actions run as causes, and they come back to us as effects." -Herman Melville

Fabry Disease Community Announcements

Attention FABRY patients!
Want to help further Fabry research?
Dr. Shoji Yano of the USC Department of Pediatrics/ Genetics Division is conducting an important study to evaluate heart and kidney problems in Fabry Disease in order to assist in early intervention… and your...

If you have a child between 6-16 years of age with Fabry disease, please submit a family application beginning July 1st to attend our annual Charles Kleinschimdt Fabry Family Weekend Camp and conference on 24-27 September, 2015. Travel is on Thursday for most families, returning on Sunday.
Please review the medical packet...

We are seeking camp volunteers for our 25-27 September Charles Kleinschmidt Fabry Family Weekend Camp at Victory Junction in Randleman, NC. Travel is on Thursday if you are attending the conference (24-25 Sept) also or Friday for camp only and then return Sunday. Volunteers are needed to fill positions as family crew...

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Founder's Corner

Wow, the last 10 years went by quickly! In June the National Fabry Disease Foundation will celebrate its 10 year anniversary. We are very proud of what we have accomplished but still have a long, arduous journey ahead of us. There is still so much to be accomplished. I remain very fortunate and proud to serve the Fabry community. March 2015. Founder and President, Jerry Walter