Camden's pain is well controlled. He is comfortable, just very upset about the tube in his nose and he hates the fact that he is not allowed to eat or drink. He is frequently requesting Papa T's pizza, 5 juices boxes, 5 apples juices, and 1 chocolate milk. We are hoping to leave the ICU later today. Ron and I didn't sleep much, but as we expected!

Lisa Leighton-Lombardi

9/5/2013 02:01:55 am

Stay Strong Camden, you will be eating before you know it!! What a wonderfully strong young man you are.

Sharon

9/5/2013 01:26:20 pm

I work with Nana Kelly Soucy - Camden has been in my prayers since his diagnosis and Nana keeps us informed on your journey. You are also on the prayer list at the Yalesville United Methodist Church, where you are remembered and prayed for. Stay strong!

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Mommy & Me

Mom﻿my

﻿She'﻿s ﻿goi﻿ng to keep everyone up to ﻿date about my progress. Isn't she the best mommy ever?

﻿Mommy thought long and﻿ hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

Diagnosis: May 9, 2013Surgery: September 2013Transplant: September 2013STRICT ISOLATION UNTIL January 2014Radiation: November 2013Antibody: January 2014END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO)**FINISHED ALL TREATMENTJULY 25, 2016

5 years from diagnosis!!May 9, 2018​5 years from frontline!! June 9, 2019