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Recent Entries

OMG. I'm sipping a beer which is a rarity. This week has been emotionally draining. The economy has had me glued to the TV. I cried and trembled when the financial facts hit me. What will become of us? There are hard times to come. So many people can't see what is happening, but that is slowly changing. Oblahblah is taking us to the second Civil War.

Being married to an Aspie is stress inducing. He is totally effected by the people he is around. When it is just him and I we are

Yesterday was a learning experience. Wake up early, nauseated from the early activity, drive to hospital, check in at emergency room wait in hall - standing, room packed with very sick people, stress about getting a virus, called to window, sign papers explain that I have a compromised immune system and must not be around sick people - asked to wait, stand in hall waiting, secondary phlebotomist says I must have a blood draw to test hematocrit and must wait in the emergency room with the sick people

When I start feeling bored it sometimes means I am feeling better. I hope it does. Tomorrow after my bleeding I am going to go to Watercanyon. No matter what. I'm going. Unless I have a bad experience at the hospital, I am going to go. I'll take my little netbook and enjoy myself.

I remember one awesome night I made friends with some really cool folks and we were all playing cards. It was one of those nights you hope you can do again, but I didn't. I was always too tired, or too?

Today was a good day! Today I wore my cool vest for the first time. It was great! It was 74 outside, but going in to stores where it is warmer really wears me out. By the time I have walked through the grocery store and am standing in line I am usually overheated, sweating, feeling like I will collapse if I must take one more step. Today was DIFFERENT!

The cool vest lowered my body temperature well. I have to force myself to go out because I know how bad I will be feeling. That seems

On a spectrum of black and white, lupus can own every microscopic degree of change from the brightest white, to the darkest black. Some days lupus lives with me in a spectacular bright white Light. Light illuminates my soul and touches those around me with love, joy and peace.

The changes can come ever so slowly, so slow they sneak up on me like a child tip toeing behind its mother to surprise her with "GOTCHA." Only with lupus there are never any giggles when I realize