Saturday, 30 January 2010

For those who may have not already seen

Having just noticed that the January blog entry count is looking rather light, I thought I'd resort to the TV broadcaster's approach and put out a repeat! Most of you have probably seen this, but for those who haven't, have a look at http://www.steveevans.co.uk/

7 comments:

Anonymous
said...

Steve

Have been watching your blog - its very insightful as to the experience you are going through and I am amazed at your general resilience and ability to retain a sense of humour, which can't be easy when life is such a struggle.

The missus has just shown me how to post comments on a blog (this is my first ever!).

I haven't done blogs before so this probably won't even work but just to say it is amazing to read all of your stuff on here and I love the video in the snow. Thinking of you all the time. I haven't read everything yet (just the most recent - and got to work out how to go to older stuff!) but this eyegaze technology is fantastic. As I said before, thinking of you and your family. Tone xxx Oh No. Now it's asking me to select a profile. What is that??? I think I have to choose Anonymous because I don't know what the other ones mean!!!!

Hi Steve. We'll keep reading as long as you keep writing. My cousin had MND, so I've seen close up what it can do and send you all the very best wishes a person can send. Keeping positive can help, but wingeing and moaning are all part of it too, just be yourself. I've chosen anonymous as I don't know what the other ones mean, like the person before me. ax

Hey mateI too have been keeping up with the blog, but as with John B above, only just discovered how to leave a comment.... and I thought I was supposed to be the more tech capable in my family! Anyway, hope Jon & Adam met up with you yesterday in the end- hopefully I'll manage to get over there soon too. Love,

About Me

OK, should have done this two years ago when I was first diagnosed with Motor Neurone Disease but better late than never. I thought it would be a good way of keeping anyone who was interested up to date with what's going on with us. Communication is getting harder and whilst I want to keep texting, emailing and chatting to everybody this seemed a good way of saying more things to more people more easily. Typing is a slow process (this has taken 20 minutes so far) so a once to many approach seemed good.
I hope to keep it up to date with various stuff including whinges about things MND related as despite trying to "keep positive" it does affect (in a generally f**ks it up kinda way)almost everything I do!
For those of you who really want to, you can check out my "status" on my web link.
Finally, PLEASE leave comments, even if brief as its the only way I know its being read!!