What's With The Coffee?

On my 7th day Gluten free,, but still having problems every morning after having my coffee & gluten-free creamer. Within 10 minutes after drinking it I'm running to the restroom. So, I went 2 mornings without & had no problems, 2 mornings with & had the problem!!! SO, I should not have it, RIGHT? but my question is WHY I react like that? I don't like milk, but have no problems with sour cream or cheese. No problems with Dr.Pepper or tea. Any thoughts????

Does your creamer have casein (or even carrageenan or soemthing)? It's possible it could bother you.

You could try the coffee without the creamer. See if that works. Some people can't handle coffee...but if you love the coffee, might wanna see if it's something in the creamer first. When you're new at gluten free, your gut may react strangely to stuff that's usually doesn't bother you while healing is taking place.

Hi. I'm also having trouble with coffee. I hate the thought of giving it up, I've practically lived on coffee for as long as I can remember. I'm down to drinking it only in the morning....forget the afternoon pot that I used to make...I bloat up like a pufferfish before I even get the first cup down. But then again, everything is doing that to me. I've been on the diet for almost 3 months and still having lots of problems. The good news is, that at least now I'm having less problem at least some of the time. Hang in there!

The "non-dairy" creamer would do that to me, whether due to the casein, HFCS or who-knows-what.

(Just remembered that my little brother had the same issue, tho he wasn't celiac as far as we know)

Easy test tho.
Coffee alone, or creamer alone. I didn't catch whether the creamer is a liquid or powder, so obviously it's more doable if it's liquid.

I often use Pacific brand Hazelnut milk in coffee , tho I usually don't think my coffee needs anything, now that I've started buying GREAT coffee from little coffeehouses which have a roaster in-house.

Artfully roasted small-batches are SOOOOOOO good I've turned several former Starbuck's (aka charbucks to reflect the burnt flavor of over-roasting, which fully necessitates milk/creamers/flavorings) drinkers into anti-starbucks converts.

1

>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

After being gluten free for 7 months I was still having problems regularly, and it was always after my coffee, which I had two cups every morning with that Coffee Mate Vanilla stuff, dairy and gluten free. I also found myself not eating any breakfast in the morning because it took my stomach a couple hours to settle down after I had the coffee and food was aggravating it, and I couldn't "not eat" since I was already losing too much weight. Plus I am a college student, and I need to feed my brain.

So this past summer, (after summer school let out) I did it.... I went caffeine free. I never thought in a millions years I would give up coffee for anything or anyone! But I was feeling so much better after going gluten free, except for the coffee... so I had to try it.

It was a tough couple of weeks, but soooo worth it. I am so glad I gave it up.
I now drink decaf with the same creamer every morning... and I can eat breakfast. I also am no longer a slave to caffeine and all the diuretic effects that go along with it.

So... I guess for me, the pain of staying on caffeine was worse than the pain of getting off. I have to tell you though, I almost gave up a time or two while I was decafing by body. In the end it was totally worth it in a huge way, and I am really glad I did it.

(Now I am hanging on to my wine...

Good luck!

0

Cindy

Gluten Free since November 2006Lactose Intolerant since 1980100% Lactose Free since May 2006Caffeine Free since August 2007Hashimoto's Disease

So, I went 2 mornings without & had no problems, 2 mornings with & had the problem!!!

I was having problems for two months, went off coffee yesterday and this morning and I am feeling 10 times better. No running to the bathroom 30 mins after my coffee. I can't believe it took me so long to figure out it was the coffee. I don't think I wanted to even think about giving that up. I'm hoping that once my stomach heals again I can have some once and awhile. I've also cut out citrusy fruits, craisens and red wine. Seems to be helping! Whatever works right?

(gluten free 10 months, antibodies almost back to normal - not sure what caused the stomach upset in the beginning, maybe small glutening)

I've heard that the instant coffees actually have gluten in them to keep them from caking up and sticking all together

Well, this just isn't true. As everyone keeps stating, with the new labeling laws, they just couldn't do that without telling us. The instant coffee's are 100% coffee, just the same as the regular coffee's, the decaf's are just decaf, the same as regular decaf. I have been gluten free for almost 8 yrs and have only been glutened once by coffee. A gas station/convience store employee had mistakenly made a pot of hazelnut coffee in a regular pot and I was glutened by one swallow of that hazelnut. Many flavored coffee's do contain gluten, as do many flavored teas.

I just purchased a jar of Folger's Instant Decaf to take on vacation with me and it states on the jar, 100% Pure Coffee, which is the very same statement on the regular cans of coffee.

0

DebLong Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

When we omit the main antagonists from our diet we will often find that other food issues show up that originally were masked by everything else. It is likely that coffee has always been a problem but you just didn't notice it until the other things were taken away!

I noticed Emily that you seem to have problems with things like raisins and red wine. I can't drink tea, coffee or wine and it wasn't till I had a problem when my stomach was bad (pre gluten-free) with Slippery Elm which is supposed to be good for the stomach and discovered that it contains Tannin, that the jigsaw puzzle fell into place.

Tannins are in all these foods. I may find later, when my gut has healed that I may be able to tolerate them occasionally but for now they are definitely out of bounds. The only wine I can drink is the really low alcohol white wine, but I don't drink much of that as it can have a high sugar content.

Those who can't drink coffee may find that it isn't the caffeine that is the problem (although it does put an unnecessary loading onto already over-stressed livers!) but the Tannin. I am now just sticking to plain spring water with an occasional herb tea. Yes I miss my milky drinks, especially hot chocolate but what price is health? It may taste nice, but if it is harming me, I only have one body and can't get it back once it is ruined, so it is just not worth the sacrifice.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

I have the same problem with coffee. For me its the the creamers or the sugars. Its literally just coffee no matter what brand or whether its brewed or instant. It makes me grumpy as well. I'm so addicted that its like beating my head against a brick wall. I know it bothers me, but I keep hoping that its something else and it won't bother me "just this time". For me it isn't digestive issues, its more neurological with fatigue and pain. Good Luck!

I totally hear you, Jitters! That is my problem too. Have been gluten-free since Jan 08 (aside from all the mistakes and slipups we newbies make), then discovered dairy was a problem. Started drinking coffee black, but it seems any decent amount of caffeine from a regular cup of coffee just makes me feel as though my whole nervous system is having a bad reaction. I am hurting, grumpy, and frazzled! Now just the residual caffeine from a decaf cup is all I am ready to handle, just one cup a day, or every other day. Maybe I will switch to a tiny cup of Greek coffee of something, just because I am not psychologically ready to give it up entirely (still experimenting to see whether bad reactions to dairy, potatoes and tomatoes are going to be a permanent thing).

Tannins are in all these foods. I may find later, when my gut has healed that I may be able to tolerate them occasionally but for now they are definitely out of bounds.

I was wondering about Tannins awhile back when I was trying to figure out the cranberries. When I researched it I noticed I was eating a lot of foods with Tannins in them. I must have missed the coffee (or subconsciously ignored it).

Oops, in my post it should have said its NOT the creamers or sugars in the coffee. Its JUST the coffee itself that bothers me. Of course I've never tried decaf...

Looks like I'm going to have to research Tannins and maybe even switch to decaf for a bit, then quit that as well. I've quit coffee before numerous times and both times it has taken 2 full weeks before I felt like I was going to be ok without it. On the positive side it took about 4 days before I felt good again, so it was well worth sticking out the rest of the two weeks. Interestingly it takes about 4 days before it starts bothering me again once I start drinking it again. So then I feel like I'm doing good on it and it just MUST have been something else bothering me. Again, here I go hitting my head against a brick wall.... sheesh! When will I learn!!

I think I might try soy free as well, everyone I know who has gone soy free has done so much better on it. Does anyone know how long it takes after going soy free that you feel a difference?