GeneSpark Foundation's Fundraiser:

General Donations

THE STORY:

GeneSpark.org, an international non-profit foundation, is raising money to fund scientific research projects aimed at advancing a drug treatment for Kleefstra syndrome (KS). KS is a rare genetic condition caused by a mutation or deletion of the EHMT1 gene. KS patients have intellectual disabilities, speech impairments and various other neurological and physical abnormalities, including walking difficulties, heart defects, kidney/urological defects, respiratory infections and seizures. There is no treatment today, however, scientists do know enough to begin working towards developing a drug. Funding is the biggest hurdle and, as such, your donation and support can put a treatment within reach.

The Team:
$111,289 TOTAL RAISED SO FAR

Donor Comments

Kleefstra Virtual Walk 2016

DONATION: $111,289

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