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National Alliance for Thrombosis and Thrombophilia (NATT) - A Patient Advocacy Group

October, 2005

The National Alliance for Thrombosis and Thrombophilia (NATT) has provided us with information about their organization. A summary of NATT's history, goals, activities, and priorities is below. To learn more about NATT, you may visit the organization's website at http://www.stoptheclot.org.

History

In August 2003 a patient advocacy group for thrombosis and thrombophilia formed, NATT (National Alliance for Thrombosis and Thrombophilia). The CDC under the leadership of Dr. Bruce Evatt had long seen the need for a national consumer advocacy group to (a) lobby in Washington for more funding for thrombosis and hemostasis centers, so that better care could be provided to patients suffering from thrombosis and thrombophilia, and (b) raise the awareness of these disorders in the public and the medical community so that more physicians would find coagulation a worthwhile subspecialty field to go into. Over a period of 2 years the CDC had explored options for such a patient advocacy group through patient focus group meetings and discussions with health care providers and existing patient interest groups. This fostered and eventually led to the formation of the independent and volunteer patient interest group NATT in August 2003. NATT was incorporated in December 2003 and received non-profit 501c3 status in December 2004.

NATT's Goals

NATT is a community-based, volunteer organization. Board members are individuals affected personally or through family members by thrombosis and/or thrombophilia. NATT's goals are to (a) promote greater awareness of thrombosis and thrombophilia in the public and health care provider community, (b) to ensure better diagnosis and treatment of patients with blood clots, and (c) to foster research on these disorders. The long-term objectives are to