Wednesday, August 8, 2007

If you know what you are looking for, you can see the images, clearly. But to the untrained eye, if I told you that I saw horses in this picture you would think I was a kook! My medical situation has morphed into an enigma ~ some things just can't be explained and/or understood by anyone but an expert. Take for example the ever elusive Occult Tight Filum Terminale ~ Apparently, I have baffled my latest neuro-surgeon. Today, I called to get an update on his findings from his extensive scrutiny of my MRI films (he's had 4 weeks to mull over the information). His medical assistant told me that he had just drafted a letter to send to me.

A letter??? So ~ he's going to dismiss me as a patient due to his expertise ~ he finds no tethered cord and no need for surgery. I don't have that in writing, yet, but I am pretty sure that's the verdict. So that means that I have a week to plot out my next steps and plan of attack. I sense that an appeal is just around the next bend in the road.

That's my only issue with TCI. They seem to have diagnosis at times that the rest of the medical world just can't figure out. What's the status on just decompression? Is that a definite "yes, you need it" and it's the spinal surgery they're still trying to work out?

I just found your blog this morning. I always get excited when i find another Chiarian. My wife is one. I'll need to read up on your previous posts to catch up, but I hope you can get the infernal doctors on your page. This can definitely be frustrating. This was me, Bobby commenting, not my liver billybob.(he's snarky)

Lace,I wish docs like him would have to go thru this type of scary stuff just once. It would make them more empathetic people and better doctors. See if you can get an appointment just to confront him and press for answers in person. When I was diagnosed I felt like the surgeon was thinking "goodie, goodie, a cool procedure I get to do!"

For Lace: {{{{HUGS}}}} I am so sorry this has happened to you. What is the matter with these doctors? Hang in there lady. Our path seems to have a lot of pot holes but we have someone strong enough to carry us over them. God is going to get you through this.

Lacie's MRI

My Chiari Brain Tail ~ The difficulties of Chiari (pronounced key-ARE-ee) go beyond balance, as a lack of space at the base of the skull pushes the cerebellum and brain stem into the upper spinal canal, placing pressure on the spinal cord.

September 26, 2006 ~ The day that I was introduced to my Chiari (pronounced key-ARE-ee)

I have set up this blog in an attempt to keep friends and family posted as I embark on this new journey that I have been commissioned to take. Bear with me ~ along with my experiences, you will likely find some random ramblings about my latest passions, too. Here's my e-mail address if you want to drop me a line sometime: lemorrison70@gmail.com

Hope In You

Courage

Fearlessness may be a gift, but perhaps more precious is the courage acquired through endeavor, courage that comes from cultivating the habit of refusing to let fear dictate one's actions. ~ Aung San Suu Kyi

Leave Your Cares To The Sea

To Be Fully Human

To be fully human is to believe in something or someone,
to know that it's possible to face the unimaginable and
somehow put one foot in front of the other until you manage
to find your home again.
~ Oprah Winfrey

Ancient Buddhist Blessing

May no one who ever meets me have a meeting of little consequence. May the simple fact of our meeting assist in the fulfillment of their wishes. May I be a lamp in the darkness of life, a home for the homeless and a servant to the world.