Patient Success Stories

Meet our March Patient of the Month, Theodore. Theodore was diagnosed with cleft palate, cleft lip and a heart problem when he was only 18 weeks old. After he was born, Theodore had to be admitted into the NICU to be able to perform the necessary surgeries for him to live a healthy life. Read this story.

When Harper was diagnosed with Beckwith Wiedemann Syndrome shortly after birth, her family knew they wanted the best team possible for her tongue reduction surgery. Harper now leads a limitless life thanks to Dr. Chad Perlyn, an expert in treating macroglossia, and the Craniofacial Center at Nicklaus Children’s Hospital. Read this story.

A team of surgeons from Nicklaus Children’s Hospital’s Craniofacial Center performed a complex reconstructive surgery on a seven year-old child that will improve his vision and ability to eat, as well as his appearance and overall quality of life. Read this story.

Emily was born with Pierre-Robin sequence, a condition present at birth which tends to cause a small jaw, a tongue that is displaced back towards the throat and a cleft palate. She was brought her to Nicklaus Children’s Hospital, where she underwent surgery to repair her cleft palate, and since then her life has completely turned around. Read this story.

When asked what she wants to be when she grows up, Alexis has a ready answer: doctor, lawyer, teacher and dolphin trainer. While that may seem like a lot of goals, nothing is too much for this outgoing girl.One would never guess that the beautiful 9-year-old was born with a condition requiring six surgeries to repair. Read this story.

Craig was born two months early with an abnormality called craniosynostosis that made the sutures on his head fuse prematurely. Dr. Anthony Wolfe performed corrective surgery CJ is a healthy boy. Read this story.