The weaning has begun. They've finally begun to wean baby girl off her sedation medication. Like everything else, this is not a fast process. In fact they've told me they will wean her over a 2-3 day period. They want to make sure her vitals stay strong as they slowly turn down her medication. After they successfully wean her they have some signs she needs to exhibit before they will let her off the vent. We are praying as soon as she is weaned she will immediately start to display the signs that she's ready to breathe on her on. Getting to that point is going to be a slow and steady march over the next few days, but it'll be a big step for Ellis once she's there. There's a baby down the hall I hear cry and every time I think "Oh man, I can't wait for the day I get to hear Ellis cry." It's funny the things you long for, but oh what a glorious day that'll be to hear the sound of her voice again.
She's still having seizures but they have been on a much smaller, shorter scale. While that is still progress in the right direction we are still praying they will go away entirely. Visually she still appears to have some brain swelling as well. We are praying for that swelling to leave.

Her next progress is going to be very watch and see. We prayerfully believe we will see many more small steps forward. The pace is tough. I want it so badly to move quickly so we can both be home with Milo. But I know that slow and steady is good for her. Slow and steady is what she needs. You can definitely be praying for us for no setbacks that would delay her progress.

For the next few days very little news will be good news. All may look like it's quiet but you just wait. Miss Ellis is getting ready to roar (watch out world).

Therefore, since we have been made right in God’s sight by faith, we have peace with God because of what Jesus Christ our Lord has done for us. Because of our faith, Christ has brought us into this place of undeserved privilege where we now stand, and we confidently and joyfully look forward to sharing God’s glory.

Romans 5:1-2

PS-Big brother got to come for his second visit yesterday. This is why we all love to be around this kiddo, he's full of life, pure joy, and a professional selfie taker.

Sarah Rodriguez Rhodes

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Ellis Update: Today was a hard morning, guys. We got to the hospital & things just felt all wrong. I don’t know how to explain it other than that. Then the anesthesiologist had issues with some secretions Ellis was having that we were told amplified her risk during the surgery while under anesthesia. Given the past things we’ve walked through, we just decided it wasn’t a risk we were at all willing to take. So we made the decision to go home, re-group & do the surgery another day. Since the surgery is elective we had our medical teams full support in this decision. We are home now & doing well. This wasn’t an easy decision to make. For months we’ve prepared mentally, emotionally, schedule-wise, financially etc for this day. But we have to be lead by peace. And if those giving her medical care also weren’t completely at peace, it just wasn’t the right time, for whatever reason. I don’t always understand the “why” but I won’t always & I’m ok with that. We appreciate your prayers & promise to keep you informed of when her surgery will be in the coming months. Also, the day wasn’t a complete loss...Ellis did get to hang with the cute hospital dog-so at least that part was a win ☺️ Looking for some kind of humor-it’s been a rough day.

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