Welcome to the Dystonia International Patient Registry (DIPR)

The goal of this registry is to develop a comprehensive list of all individuals who carry any of the Dystonia gene deletions, specifically the DYT1 gene deletion and their family members worldwide. It is the first and only Dystonia registry to attempt to capture this information to assist researchers in finding a cure to Dystonia.

You can make a difference in dystonia research by participating, please consider joining all of us in a fight for a cure!