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Thursday, May 17, 2012

My precious daughter... Today marks 2 years since we got the call that changed the lives of so many, and saved yours. After waiting 97 days for your strong sparkly new heart, I grieved for the pain another mother was feeling somewhere in the country, and handed you off to the surgeons trusting they would return you to me a stronger version of yourself. Not only did they deliver on that, but they handed me a little person with a future. To see the achievements you have made over the last 731 days is nothing short of a miracle. You have allowed me to see everything with beauty and purpose. Nothing is impossible and every moment is a chance for a miracle. You have done more than survive, you have lived, and you inspire me to do the same.

I wouldn't have traded a single second of time or ounce of energy I put into fighting alongside you from the moment we discovered a problem until the moment I type this letter. The sleepless nights and levels of intense stress, the fights with insurance and pharmacies, challenging doctors and nurses, the research and education on your conditions and medications, the miles driven and dollars spent... never will I regret it or wish to change any of it. I'd proudly give my life for you and your little brother at any moment, and I can only hope you can look back and say you know I would because I did.

I do not know what the future holds for you, for me, for our family or for whatever God may throw our way. But I want you to know, my little princess, that being given the blessing of waking up every day and knowing God let me keep you is more than I ever deserved as your mother.

Tuesday, May 15, 2012

With every morning that Gabriella opens her eyes and her heart beats, a sweet mom has awakened to another morning without her princess. My heart rests in prayer for Gabriella's heart donor, and Abbie's family, as they remember their loss 2 years ago today. Please lift your prayers of rest and remembrance to her family with me as we remember a little life gone too soon.

About Me

Gabriella was diagnosed in April 2009 with a severe and irreparable congenital heart defect, Hypertrophic Cardiomyopathy. On September 25 2009, just before being listed for her new heart, she suffered a left MCA stroke, impairing her right arm abilities and taking away her speech. She was finally listed and received her heart after 97 days of waiting on May 17, 2010. Gabriellasheart.com has transitioned from a diary of our simple life to a log of Gabriella's status, and proves what a warrior she is.