Jimmy Galvin , left, said he was shocked the first time he walked into Sam's hospital room

When Sam was released from a Sydney hospital in a motorised wheelchair three years after becoming ill, his mates rallied around him.

Team Ballard raised money for the 24/7 care that he required, but it could never be enough.

Katie applied to the National Disability Insurance Scheme when Sam became eligible for a £300,000 package in 2016.

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But last September without warning, the NDIS texted Ms Ballard to say a review of his plan had slashed his allocation to about £75,000.

The massive funding cut was without explanation and around-the-clock care means the Ballard family are heavily in debt and currently owe a nursing service £25,000.

The NDIS said it had been “working closely with the Ballard family” to find a resolution.

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