As you may or may not recall, Namine recently had a sleep study at the hospital last week. The techs stuck wires and glue in her hair and told her to go to sleep, with the hope that this would be a decent indication of how she sleeps at home. And I can’t help but think, how can hospital workers be this daft?

It’s always a bit frustrating for us when we have to deal with doctors who feel they know Namine better than we do. Imagine how maddening it is, then, when we meet a doctor for the first time and she is convinced that we are doing everything wrong.

Namine had a sleep study last night to observe her restlessness. The goal, of course, is to get her to stop rolling around as much, so that she gets better rest at night. But like Heisenberg, we know that putting leads and monitors on Namine interferes with normal sleep; as a result, she only slept in spurts of a couple hours, waking up, and falling asleep again. This went on for the entire night.

I didn’t get to accompany Jessica and Namine to therapy today, but my sister did. Namine walked on the treadmill only because she had therapy with Lesley, and she walked across the mat “eight thousand times faster.” That may or may not be an exaggeration.

On Thursday I took Namine to the speech pathologist at Children’s. He wanted to see and hear Namine speak with the prosthetic and without it. I had not put the prosthetic in because it makes Namine throw up. So we went without it, I still had it in my purse. Namine did her talking into the microphone and that went well. He and I talked and I told him that the Pat (that’s what I call the palatal prosthetic; it’s just easier to say) makes Namine throw up, and she couldn’t eat with it in, she was just having an all over hard time with it.