The chronicle of a family thriving in the middle of a nightmare. You'll laugh a lot more than you expect. Promise.

Monday, January 25, 2010

Naps are for Babies

And apparently Simon is not a baby.

He's on some kind of developmental tear and for the last three days has forgone naps. Granted, he's also back to sleeping nights after working out a wicked cold (again, he handled it much better than I did) but holy heck, he's been stupid cute and clearly getting ready to do big things.

We've got new words and new sign language down. He's very clear telling us when he wants more of something and just recently started doing the sign for 'yes' when we ask him whether he wants something or not.

I haven't seen it yet firsthand but I'm imagining it's a little like the fist pump from the MTV show the Jersey shore only just in a slightly different position and with a lot less hair gel involved (although tonight's yogurt did go right into the hair so.....)

As much as I thought I might fall down from exhaustion by 8pm, I also thought I might fall down from laughter.

He's working his eyebrows in new ways. He's making new sounds and mimicking words and sentences. He's pushing his crocodile walker from one end of the room to the other, pivoting, and heading back again. He's pushing limits and testing boundaries (oh lordy).

In general, he's just being an amazing baby......sorry...little boy.

The back pain, the sinus pressure, the sleeplessness, it's all transient.

My relationship to this little wonder, forever.

MM arrives this Friday!! (so does smoked mozzarella from Arthur Avenue in the Bronx!! I'm thinking that since Simon is biologically related to me that there's a really good chance he's going to want to inhale this like I do.)

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About Us

Team Shimmy was started the day our baby, Simon (aka Shimmy), became suddenly ill (8/1/08) with a rare heart condition called Cardiomyopathy. That day, friends and family rallied around us to form Team Shimmy. This team, which has grown to include new friends and strangers from all corners of the world, has sustained us with love, food, kind words and listening ears.
We spent 4 tumultuous months in the ICU at Children's Hospital Oakland. Simon has been steadily improving since that day. He was fed through a tube in his belly (a Mic-key) until December 2013, was diagnosed on the autism spectrum, receives various types of therapies and is still on meds. Oh, and he's the happiest, most engaging kid we've ever seen. Jaime (Mama) works in public health and Laura (Mommy), a former school social worker, stays home to take care of Simon (and to take him to his MANY appointments). To see a 10-min documentary about our family, go to www.youtube.com/watch?v=uGh8dFp2oqk.
This blog is a chronicle of our experience thriving in the middle of a nightmare. You'll laugh a lot more than you expect. Promise.
Contact us at lafitch@gmail.com or jaimejenett@gmail.com