Wednesday, April 24, 2013

HELLO SAI FAMILY AND FRIENDS....I KNOW IT HAS BEEN AWHILE SINCE WE HAVE UPDATED YOU ON SHANYNA'S PROGRESS....WE WOULD FIRST LIKE TO SAY THANK YOU ALL FROM THE BOTTOM OF OUR HEARTS FOR YOUR LOVE AND SUPPORT.......SINCE JANUARY SHE HAS HAD 3 ADDITIONAL SURGERIES WHICH CONSIST OF A STOMACH SURGERY...TISSUES REMOVED FROM HER KIDNEYS AND A CYST REMOVED FROM HER BACK THAT MADE IT HARD FOR HER TO WALK STRAIGHT....SHANYNA INSIST THAT WE TAKE PICTURES AND KEEP YOU ALL UPDATED WITH HOW SHE IS DOING...SHE LOVES EVERYONE WHO IS CONCERNED ABOUT HER WELL BEING...SHE IS ABOUT 35-40% WELL...EVEN THOUGH THE DOCTORS TELL HER SHE IS STILL IN THE BABY STEPS AREA AND HER ILLNESS IS STILL UNKNOWN...SHE STILLS SMILES AND PRAISE GOD FOR EVERY LITTLE BITE OF GOOD NEWS THAT COMES HER WAY....IMAGINE GOING FROM SOMEONE TELLING YOU...YOU WILL NEVER WALK AGAIN AND GIVING YOU A DATE FOR YOUR LIFE CLOSELY EXPIRING.....TO A WALKER...A CANE....TO NOW WALKING ON YOUR OWN...."AIN'T GOD AWESOME".....SHE STILL HAS A LONG WAY TO GO AND IS STILL ASKING FOR YOUR PRAYERS AND DONATIONS TO KEEP HER PROGRESS GOING TIL SHE GETS TO A 100% ... SHE KNOWS WITHOUT YOU GUYS HELP SHE WOULD NOT BE WHERE SHE IS TODAY...SHE ASKS TO PLEASE CONTINUE YOUR PRAYRES AND SUPPORT...THANKS AGAIN AND DON'T FORGET TO VISIT THE "OFFICIAL" FOUNDATION PAGE AT: WWW.SAI-FOUNDATION.COM.....IN SHANYNA'S FAVORITE WORDS .....GOD BLESS...LOVE!!!!!!!!!

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HELLO WORLD.....MY NAME IS SHANYNA ISOM OF MEMPHIS, TN....I AM A 28 YEAR OLD FEMALE WHO WAS A FULL TIME STUDENT AT THE UNIVERSITY OF MEMPHIS AND A FULL TIME BEAUTICIAN WHO IS SUFFERING FROM A SERIOUS UNKNOWN ILLNESS……IT HAS TAKING ALL OF MY HAIR OUT AND HAS LEFT MY BODY WITH SCABS ALL OVER IT PLUS I HAVE LOSTED ABOUT 200 LBS....... TWO YEARS AGO I WAS A HEALTHY WOMAN ON MY OWN.....I HAD BIG DREAMS AND GOALS THAT I WAS FOLLOWING UNTIL ONE DAY MY BODY COMPLETELY SHUT DOWN ON ME.... I HAD AN ASTHMA ATTACK AND WAS SENT TO THE EMERGENCY ROOM..... ONCE I GOT THERE I WAS GIVEN STEROIDS WHICH STARTED ME TO ITCH UNCONTROLLABLY...... I WENT BACK TO FIND OUT WHY AND THE DOCTORS TOLD ME I WERE HAVING AN ALLERGIC REACTION TO THE STEROIDS AND PRESCRIBED ME SOME BENADRYL...... IT WORKED FOR ABOUT A DAY THEN THE ITCHING CAME BACK STRONGER THAN EVER AND I STARTED BREAKING OUT ALL OVER MY BODY....... I ENDED UP GOING TO A DERMATOLOGIST WHO RAN EVERY TEST ON ME THAT COULD POSSIBLY BE RAN BUT EVERYTHING CAME BACK NEGATIVE..... SO FINALLY HE DECIDED THAT IT WASN’T MUCH MORE HE COULD DO AND SAID THAT I WOULD BE LIKE THIS FOR THE REST OF MY LIFE…….I STARTED GOING TO DIFFERENT DOCTORS AND THEY TRIED DIFFERENT TREATMENTS AND SURGERIES BUT EVERYTHING SEEM TO GET WORST.....AS TIME PROGRESSED MY ILLNESS GOT SO BAD THAT IT AFFECTED MY WALKING ABILITIES AND VISION.....THE DOCTORS IN MEMPHIS HAD GIVEN UP ON ME AND TOLD MY FAMILY THAT THERE WAS NOTHING ELSE THAT COULD BE DONE......SO MY FAMILY BEING THE STRONG MINDED CHRISTIAN BELIEVERS THAT THEY ARE THEY DIDN'T TAKE NO FOR AND ANSWER....THEY TOOK EVERY PENNY OF THEIR SAVING AND SENT ME TO DIFFERENT HOSPITALS THAT SPECIALIZE IN UNKNOWN ILLNESSES.....I HAVE BEEN TO SOME OF THE BEST TOP NAME HOSPITALS IN THE U.S. ..I EVEN HAD A DOCTOR IN THE NETHERLANDS WORKING WITH ME... BUT EVERYWHERE I WENT ALL I GOT WAS "THEY NEVER SEEN MY TYPE OF ILLNESS BEFORE" IT MADE ME FALL INTO DEEP DEPRESSION.......I KEPT FEELING LIKE I HAD NO CHANCE OF EVER GETTING THE HELP I NEEDED....RIGHT WHEN I THOUGHT I WAS AT THE END AND WANTED TO GIVING UP "MY GOD" SHOWED UP AND ANSWERED MY PRAYERS.....I WENT TO A NEW PCP AND THE DOCTOR TOOK ONE LOOK AT ME AND TURNED TO MY MOTHER AND SAID GET HER TO JOHN HOPKINS HOSPITAL ASAP......WE WENT HOME AND PACKED AND CAUGHT A FLIGHT THE NEXT DAY......I CHECKED INTO THE HOSPITAL IN AUGUST OF 2011 AND I AM THEY TOP STUDY RIGHT NOW......THE PROBLEM IS THAT THE TREATMENTS ARE GOING GOOD(EVEN THOUGH MY ILLNESS IS STILL UNKNOWN) AND I FEEL 25% BETTER BUT IT IS HARD TO GET BACK AND FORTH FROM MEMPHIS TO BALTIMORE.....WITH THE TREATMENT SCHEDULE THEY HAVE ME ON NOW I HAVE TO GO THERE ONCE A MONTH UNTIL I AM OUT OF THE CRITICAL STAGE.....PLEASE! PLEASE! PLEASE! IF THERE IS ANYONE ONE OUT THERE WHO CAN HELP ME IN MY TIME OF NEED PLEASE LEANED A HELPING HAND OR KNOW OF ANY FOUNDATIONS PLEASE CONTACT ME IMMEDIATELY .......THANKS FROM THE BOTTOM OF MY HEART....SHANYNA ISOM