Directory List

Welcome to Your Special Needs Directory List

When you’re caring for a family member with special needs, having extra help is always appreciated. Here you’ll find an abundance of useful resources to help you in every aspect of the care and development of your loved one.

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Abilities Expos

http://www.abilitiesexpo.com
Abilities Expos have seved the Community of people with a disability since 1979. In 2016 events will be held in NY Metro (4/29-5/1), Chicago (6/24-6/26), Houston (8/5-8/7), Boston (9/16-9/18) Bay Area (11/18-11/20), DC Metro (12/2-12/4) and Los Angeles (3/24/17-3/26/17).

Ability First

http://www.abilityfirst.org/
AbilityFirst provides programs and services for children and adults with disabilities. Established in 1926 as the Cripples Children’s Society of Southern California, our mission is to help people with disabilities realize their full potential throughout their lives.

About Special Kids

http://www.aboutspecialkids.org/
Welcome to About Special Kids (formerly the Indiana Parent Information Network)! We have changed our name to more accurately reflect the fact that we are the place for families and professionals in Indiana to go to “ASK” questions about children with special needs and to access information and resources about a variety of topics such as health insurance, special education, community resources and medical homes.

accessABILITY Center for Independent Living, Inc.

http://www.abilityindiana.org
Our mission is to support all people with any type of disability and age to live more independently in the setting of their choice, improve the overall quality of life and remove community barriers to inclusion. Since 1987, we have assisted over 15,000 people with disabilities in Central Indiana.

Acoustic Neuroma Association

http://www.anausa.org
The mission of ANA is to inform, educate and provide national and local support networks for those affected by acoustic neuromas, and to be an essential resource for health care professionals who treat acoustic neuroma patients.

Adrenal Diseases Foundation

http://www.nadf.us
Our Mission The National Adrenal Diseases Foundation is a 501(c)(3) non-profit organization dedicated to providing support, information and education to individuals having Addison’s disease as well as other diseases of the adrenal glands.

Adult Growth Hormone Deficiency

http://www.magicfoundation.org
Is your child growing normally? If your child does not have a diagnosed syndrome or confirmed growth hormone deficiency, start researching by clicking here or read the information below. We are Parents who have been “there”. We fought to find answers for our children’s lack of normal growth because we were concerned about their health. And because our children were “affected” we are passionate about getting information “out there” for other parents. Growth hormone and all growth disorders are a reflection of overall health.

American Foundation for the Blind-West

http://www.afb.org/
The American Foundation for the Blind (AFB) is a national nonprofit that expands possibilities for people with vision loss. AFB’s priorities include broadening access to technology; elevating the quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing them and their families with relevant and timely resources.

American Parkinson Disease Association (APDA)

http://www.apdaparkinson.org
APDA provides education, support, information, and referrals to people with Parkinson’s disease, their family members, friends, and healthcare providers, while at the same time raising money for scientific research. APDA is known as the largest grassroots PD organization and has a network of centers, chapters, and support groups throughout the country. APDA also operates two Centers dedicated to serving special populations: Veterans and those with young onset Parkinson’s disease.

American Self-Help Group Clearinghouse

http://www.php.com/american-self-help-group-clearinghouse
Online searchable database on all types of self-help support groups for disabilities, parenting, health, mental health, bereavement, addictions and more. Provides contact information for national self-help group headquarters, online, and one-of-a-kind groups, local self-help clearinghouses, and toll-free numbers for various specialty helplines.

Angelman Syndrome Foundation

http://www.angelman.org/
The Angelman Syndrome Foundation is a national organization of families, caregivers and professionals who care about those with Angelman Syndrome. It is a member organization of the International Angelman Syndrome Organization (IASO). As described in our by-laws, ASF’s Mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families, and other concerned parties.

Anne Carlsen Center

http://www.annecenter.org
The Anne Carlsen Center offers a rich tradition of empowering individuals with disabilities and their families. Our experienced staff provides compassion, training, services and supports in homes and communities across North Dakota.

Any Baby Can of San Antonio

http://www.anybabycansa.org/
Provide support, resources and education through Case Managment to families raising a child with a chronic illness, developmental disability or health risk, that reside in Bexar County or the 18 surrounding counties. Any Baby Can also has additional programs to support the entire family, including Prescription Assistance, Sibling Support, Any Body Can Health and Wellness Program, Center for Infant and Child Loss and Reaching Families Facing Autism.

Apert Syndrome

http://www.apert.org/
Internet safe haven, dedicated to the strength and determination of all of the people with crainiofacial differences and their families.

Applied Behavioral Services

http://www.appliedbehavioralservices.com/
Welcome to Applied Behavioral Services! ABS is an educational placement program specializing in serving children and adolescents with Autism Spectrum Disorder as well as other cognitive and developmental delays. We are an Autism Scholarship Provider as well as a John Peterson Scholarship provider with the Ohio Department of Education and are proud to offer small classroom ratios, highly individualized curriculums, and behavioral management programs all overseen by one of our highly trained BCaBA’s or BCBA’s. Applied Behavioral Services has been serving children for the past 15 years with over 25 years of collective experience with children with special needs. Our programs and classrooms are very individualized based upon the assessment and needs of the student. A student may begin our program in a 1-1 or 1-2 setting and then move to our Step-UP Programs where social skills, academics and classroom routine are stressed as a priority. Applied Behavioral Services is the largest as well as the number one private educational placement choice among our families with in the greater Cincinnati area and Dayton area. Contact us for a tour or more information about all of our programs, class placements or therapies for your child today!

Apraxia- Kids

http://www.apraxia-kids.org/
The national nonprofit organization representing the needs and interests of children and families affected by apraxia. We hope that you will want to learn more about us and join our efforts.

Arc of Chester County

http://arcofchestercounty.org
The mission of The Arc of Chester County is to advocate, educate and provide services to empower individuals with disabilities and their families to enhance the quality of their lives. The Arc offers programs and services in the following areas: early intervention, employment, advocacy, life skills training, community habilitation, camps, housing, transportation, autism training and support and housing options.

Arizona Center for the Blind and Visually Impaired

http://www.acbvi.org/
Arizona Center for the Blind and Visually Impaired (ACBVI) has been providing services for individuals since 1947. ACBVI is committed to “enhancing the quality of life for people who are blind or otherwise visually impaired.” Our services are available to adults who are legally blind or visually impaired as well as those who have a degenerative eye condition which may eventually become a visual impairment. These services are offered separately or concurrently according to the individual needs of the qualifying client.

Arizona Industries for the Blind

https://www.azdes.gov/aib/
Arizona Industries for the Blind was established in 1952 to provide employment and training opportunities for Arizonans who are legally blind. Most individuals of working age who are legally blind can compete successfully for good jobs if they’re given the opportunity to develop skills and increase their self-confidence.

Arizona- Raising Special Kids

http://www.raisingspecialkids.org
Raising Special Kids is a non-profit organization serving families of children with disabilities and special health needs in Arizona. All programs and services are provided to families free of charge. At all ages and stages of a child’s development.

Arthritis Foundation – New Jersey Chapter

http://www.arthritis.org
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions. Founded in 1948, with headquarters in Atlanta, the Arthritis Foundation has multiple service points located throughout the country.

Arthritis Society

http://www.arthritis.ca
The Arthritis Society offers a wide range of programs and resources dealing with arthritis. These services, including the examples below, can benefit people with arthritis as well as family members and caregivers.

ASB, Associated Services for the Blind and Visually Impared

http://www.asb.org/main/index.htm
Our many divisions serve the local Philadelphia and Delaware Valley areas and beyond.It is our goal at ASB to help the blind and visually impaired regain their independence, self-esteem and confidence so that they may lead active, productive and healthy lives.

Assistive Technology Resource Centers of Hawaii

http://www.atrc.org
Assistive Technology Resource Centers of Hawaii (ATRC) is a 501 (c)(3) non-profit organization committed to linking people with technology and empowering individuals through its use.

At Risk and Special Education Services

http://www.schools.utah.gov/sars/
We provide support to empower students with disabilities ages 3-21. Through Informatin and resources, Laws, Regulations and Polices, Family Invovement and Partnerships.

Ataxia, A-T Childrens Project

http://www.communityatcp.org/NETCOMMUNITY/Page.aspx?pid=567&srcid=-2
The A-T Children’s Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life-improving therapies for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.

Autism Action Partnership

http://www.autismaction.org
Our Mission is to improve the quality of life of persons on the Autism Spectrum and their families through education, advocacy and support, thereby enabling them to be an integral part of the community. We provide a central clearinghouse for information pertaining to the diagnosis, treatment, and community resources for individuals diagnosed on the Autism Spectrum and their families. This information is available at (877) ASD-AAP1 or (402) 763-8830 during regular business hours and through our website at www.autismaction.org.

Autism National Commitee

http://www.autcom.org/
This is the only autism advocacy organization dedicated to “Social Justice for All Citizens with Autism” through a shared vision and a commitment to positive approaches.

Autism Resources

Autism Society of Alabama

http://www.autism-alabama.org
Mission Statement: To improve services for persons with Autism Spectrum Disorders and their families through education and advocacy. Constituency: Persons with Autism Spectrum Disorders and their families Principle Beliefs: Every individual has inherent worth and dignity Inclusion in the community is preferred over exclusion; Options and opportunities should be available for every person; Services should focus on the family and the individuals; Accessible, individualized, comprehensive services should be available; Services should strive to be a model of excellence and incorporate validated innovations; Consumers should expect and receive effective advocacy and leadership; Consumers deserve to receive current information on diverse therapeutic options.

Autism Society of America

http://www.autism-society.org/
The Autism Society was founded in 1965 by Bernard Rimland, Ph.D. His book,Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, was written in late 1964 and was one of the first of its kind. In 1968, Ruth Sullivan, Ph.D., became the organization’s first elected president. Over the last 40 years, the Society has grown from a handful of parents into the leading source of information, research, reference and support on the autism spectrum. The Autism Society is the oldest and largest grassroots organization within the autism community.

Autism Society of Greater New Orleans

http://www.autism-society.org/chapter168
Provides information and referrals, advocacy and support for individuals with Autism Spectrum Disorder (ASD) and their families: to help families identify qualified professionals in their communities; to assist families in securing benefits and services provided by law; and to promote lifelong opportunities for persons with Autism Spectrum Disorder in order to be fully included members of their communities.

Autism Society of Greater Orlando

http://www.asgo.org
The Autism Society of Greater Orlando is a not-for-profit organization that was set up by families for families. Our mission is is that all individuals within the autism spectrum will be provided a lifetime network of opportunities to become fully accepted, included, and actively participating members of our community, through family support, education, and advocacy, and public awareness.

Autism Society of Illinois

http://www.autismillinois.org/
ASI is a not-for-profit 501(C)(3) organization created more than 31 years ago for individuals with Autism, parents, families, professionals, corporate partners and friends whose lives have been touched by autism. ASI Mission Statement: To improve the lives of Illinois individuals and families affected by autism spectrum disorders

Autism Society of Southeastern Wisconsin

http://assew.org
Our Mission: To support people with Autism Spectrum Disorders, their families, professionals, and others, by sharing information, supporting research, providing networking opportunities and promoting awareness through education and training.

Autism Society of Wisconsin

Autism Speaks

http://www.autismspeaks.org/
Autism Speaks is an international consortium of researchers, philanthropists, government funding agencies, and participating families dedicated. At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders. We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis.

Autism Spectrum and Developmental Disorders Resource Center

http://www.alexianbrothershealth.org/abbhh/ourservices/autism
Individuals within the autistic spectrum of developmental disorders often face a variety of unique mental health challenges throughout their lifetime. It can be confusing for parents and families to know how to locate the essential services, or even how to identify the services that their child, adolescent, or young adult needs. The Autism Spectrum and Developmental Disorders Resource Center can assist families through this confusing and sometimes frustrating process. Our expert Clinical Navigator of the Resource Center works with individuals and families to help assess their needs, and facilitate a triage of those vital services. The Autism Spectrum and Developmental Disorders Resource Center is made available to families in our community through the generosity of our individual and corporate partners. Families may then be directed to either services within the Alexian Brothers Health System, or they may be referred to services in the community.

Batten Disease Support and Research Association

http://www.bdsra.org
The Batten Disease Support and Research Association (BDSRA) began in 1987 by a group of parents looking for strength and support in a disease that only gives fear and uncertainty to those it affects. Our organization focuses on three things: Providing information, Supporting families, Promoting research efforts. We are the only family support organization in the United States, Canada, New Zealand, Australia, South Africa, as well as other nations, which is specific to Batten Disease.

Bend Work Activity Center

http://www.ofco.org/
The Opportunity Foundation is a non-profit organization with the mission of providing life improvement services to Central Oregonians with disabilities. With the Opportunity Foundation’s support, adults with disabilities in Deschutes, Crook and Jefferson counties work toward their individual goals for meaningful work, a comfortable home and the opportunity to be an active part of the community.

Bipolar Disorder, Child and Adolescent Foundation

http://www.bpkids.org/site/PageServer
The Child & Adolescent Bipolar Foundation improves the lives of families raising children and teens living with bipolar disorder and related conditions.

BiPolar Focus

http://www.pendulum.org/
Bipolar Disorder, formerly known as Manic Depression, is a highly disruptive brain disorder. Since 1994 Pendulum.org has been the web’s premier resource for bipolar information.

Birth Defect Research for children

http://www.birthdefects.org
The National Birth Defect Registry is a research project designed through a collaboration of seven prominent scientists. The registry collects information on all categories of structural and functional birth defects as well as the health, genetic and environmental exposure histories of the mothers and fathers of these children.

Blind Babies Foundation

http://www.blindbabies.typepad.com/
When an infant or preschooler is identified as blind or visually impaired, Blind Babies Foundation provides family-centered services to support the child’s optimal development and access to the world.

Brain Injury Association of America

http://www.biausa.org
The Brain Injury Association of America’s mission is to be the voice of brain injury, and to offer help, hope and healing to people with brain injury, family members and the professionals that serve them. Founded in 1980, with a network of over 40 state affiliate offices around the country, it is the only national advocacy organization dedicated solely to people with brain injury

Brain Injury Association of Florida

http://www.biaf.org/
The mission of this Association is to improve the quality of life for persons with brain injury and their families by creating a better future through brain injury prevention, research, education, support services, and advocacy. BIAF is a non-profit organization, founded in 1985 by the mother of a young man who sustained a traumatic brain injury from an automobile crash. It is an organization of individuals with brain injuries, their families, and professionals working to help people cope with the long term effects of brain injury.

Brain Injury Association of Hawaii

http://www.biausa.org/Hawaii/
Welcome to the website of the Brain Injury Association of Hawaii, a non-profit 501(C)3 agency. We are dedicated to serving those affected by brain injury through advocacy, education, prevention, and support.

Brain Injury Association of Illinois

www.biail.org
The Brain Injury Association of Illinois provides programs and services to children, teens and adults who have sustained an acquired brain injury, the families/caregivers, and professionals working with those individuals, as well as an injury prevention program to prevent the preventable injury. The BIA of IL provides an Information & Resource Center, Summer Camps for children and adults, support groups, educational programs, and annual educational conference.

Brain Injury Association of WI

http://www.biaw.org
The Brain Injury Association of Wisconsin (BIAW) is a nonprofit, 501 (c) 3 organization committed to serving individuals with an acquired brain injury and their families. The association was formed in 1980 by a group of individuals with brain injury, their family members, friends and professionals in response to the lack of available services specific to the unique needs of individuals with brain injury. BIAW is a chartered member affiliate of the national Brain Injury Association, Inc.

Brent Woodall Foundation for Exceptional Children

http://www.woodallkids.org
Since it is not realistic for the Foundation to provide even modest financial and hands-on technical assistance to all of the families affected by autism, even in the US, the Foundation focuses on a two part plan, with both prongs aimed primarily at the youngest children with autism.

Brooks Memorial Hospital Rehabilitation Center

http://www.brooksrehab.org/
Brooks has a long-standing tradition of providing quality inpatient and outpatient rehabilitation care to Florida and Southeast Georgia. The 143-bed acute physical rehab hospital is unique in the region with a highly trained staff and an unmatched range of services. Brooks has an extensive network of 25 outpatient centers and an established home health services division, Brooks Home Care Advantage, which provides the best continuum of post-acute services possible to the communities served. Brooks also has a cutting-edge research facility offering over 20 clinical trials.

C-4 Work Center

http://www.c4chicago.org/
Since 1972, C4 has been successfully helping individuals and families who are struggling with mental illness, emotional trauma, substance abuse and the aftermath of sexual assault recover and heal their lives. Through our compassionate and community-based services, we have helped them return to work or school, reestablish personal relationships, keep their homes, and live as good neighbors.

C-CAD Center of United Cerebral Palsy of Metropolitan Dallas

http://www.abilityconnectiontexas.org/
What do we do? United Cerebral Palsy (UCP) is one of the nation’s leading organizations serving and advocating for more than 54 million Americans with disabilities. Many UCP consumers are people with disabilities other than cerebral palsy. Here in north Texas UCP offers services to individuals, families and communities, such as early childhood development and education, community living assistance and support services (CLASS), home and community support (HCS), consumer direct services (CDS), group homes, adult Impact program, and removing limits through technology with our assistive technology programs. Additionally, UCP of North Texas provides OT, PT, and speech therapy along with a vast array of adaptive equipment available through our equipment loan program.

CARF International

http://www.carf.org
CARF International is an independent, nonprofit accreditor of human service providers in the areas of aging services, behavioral health, child and youth services, employment and community services, medical rehabilitation, and opioid treatment programs. The CARF family of organizations currently accredits more than 5,400 providers at more than 19,000 locations in the United States, Canada, Western Europe, South America, and the South Pacific. For more information, visit www.carf.org or call (888) 281-6531.

CASPAN: Chicago Asperger’s Adult Network

Center for Autism Research at The Children’s Hospital of Philadelphia

http://www.centerforautismresearch.com
The Center for Autism Research (CAR) is a collaborative effort between The Children’s Hospital of Philadelphia and the University of Pennsylvania. CAR’s goals are to identify the causes of autism spectrum disorders (ASD) and develop effective treatments. CAR conducts research studies for infants at risk for being diagnosed with ASD (due to having a sibling already diagnosed) as well as toddlers and school-aged children on the autism spectrum. Families receive comprehensive assessment reports and are paid for their time and travel costs. Typically developing children and adults are also needed for comparison purposes. For more information, please visit http://www.centerforautismresearch.com.

Center for Independent Futures

http://www.independentfutures.com/
The Center for Independent Futures is a not-for-profit organization that forms innovative partnerships to create product and service models that give adults with disabilities and their families the skills and opportunities to realize full lives. We use our proprietary processes to establish sustainable solutions through community living options, personal networks, lifelong planning and education.

Center for Persons with Disabilities

http://www.cpdusu.org/
The Center for Persons with Disabilities (CPD) is Utah’s University Center for Excellence in Developmental Disabilities Education, Research, and Services (UCEDD). Our mission statement expresses both our values and the ways in which we choose to work: “We collaborate with partners to strengthen families and individuals across the lifespan through education, policy, research and services.”

Central Florida Parent Center

http://centralfloridaparentcenter.org/
Our mission is to provide parents of children and young adults with all disabilities and special needs (ages 0-26) in central and northeast Florida with accurate information, interactive training, quality assistance, and empathetic support.

Cerebral Palsy of Colorado

http://www.abilityconnectioncolorado.org/
Our Mission is to create, support, and encourage inclusive opportunities for Coloradoans of all abilities and their families, through early intervention, education, employment, statewide training, information and referral, advocacy, public education services and collaborative strategies with emphasis on diversity, dignity, quality of life and the advancement of human potential.

http://www.chadd.org/
CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others.

CHADD of Nassau County (Children and Adults with Attention Deficit Disorders)

http://www.chadd.net/105
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt organization providing education, advocacy and support for individuals with AD/HD. We are proud to be one of the longest standing affiliates in New York. Our local Nassau County chapter was founded in 1989 in order to support and educate the families in our community who were experiencing frustration and a sense of isolation when dealing with issues concerning AD/HD.

Child and Family Project

http://www.bu.edu/autism
The research programs conducted in our lab began about 25 years ago. Our research has been supported by grants from the National Institutes of Health and private foundations. We collaborate with colleagues at several other institutions both in the Boston area and elsewhere.

Children and Adults with Attention Deficit Disorder of Northern Illinois

http://www.meetup.com/CHADD-Northern-Illinois/
CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others. This group is facilitated by Eric Tivers, LCSW, MSSW. Eric Tivers is a Licensed Clinical Social Worker, and a Certified School Social Worker in private practice. He specializes in working with individuals and families living with ADD, autism spectrum disorders, and other related disorders. We hold monthly support group meetings for anyone living with AD/HD and/or caregivers, spouses/partners, educators, professionals, etc. looking for information, education, and understanding. Meetings are the 3rd Monday of every month at 6:45pm in McHenry. (See meetup.com page for details) Meetings are Free.

Children and Adults with Hyperactivity/Attention Deficit Disorder

http://www.chadd.org
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt (Section 501 (c) (3) ) organization providing education, advocacy and support for individuals with AD/HD. In addition to our informative Web site, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with AD/HD. These materials include Attention! magazine, the CHADD Information and Resource Guide to AD/HD, News From CHADD, a free electronically mailed current events newsletter, as well as other publications of specific interest to educators, professionals and parents.

Citilink Fort Wayne

http://www.fwcitilink.com
Provides transportation to Fort Wayne City limits. Hours of operation are 5:45am-9:30pm Monday-Friday. Saturday hours are 7:30am-6:00pm. Also provides paratransit services during the same hours for those who are ADA eligible and certified.

Commonwealth Autism Service

http://www.autismva.org
The mission of Commonwealth Autism Service is to provide leadership in the implementation of a statewide system of services to maximize the potential and quality of life of each Virginian with autism across the lifespan. Our website includes information about autism, autism services, and providers, as well as helping you to keep up to date on policy and research.

Community Enterprises

http://www.communityenterprises.com/
Provides supported education services in a community college setting, supported employment including job training, placement and folow up, transitional services from group homes and other settings to supported living within the community.

Conklin Center for the Blind

http://www.conklincenter.org/
The mission of the Florida Lions Conklin Center is to train, assist, and support individuals that are blind and have one or more other disabilities to obtain gainful employment, live independently, participate in community life and have the freedom to make their own choices with dignity. Our students may have been born blind or suffered an injury or illness that caused the loss of sight. they are also challenged by another physical or cognitive or developmental disability such as deafness, cerebral palsy, learning disabilities or borderline mental retardation, to name a few.

Countryside Association

http://www.countrysideassn.org/
The mission of Countryside Association for People with Disabilities is to advocate on behalf of persons with disabilities and their families and to support them in their efforts to live and work successfully in their chosen community. Countryside Association is a nonprofit organization located both in Palatine and Waukegan Illinois. The organization provides the spectrum of vocational services to individuals with developmental disabilities including job placement, sheltered employment, senior services and volunteer opportunities.

Craig Hospital

http://www.craighospital.org/
Craig Hospital in Denver, Colorado is world renowned as a premier center for specialty rehabilitation and research for people with spinal cord injury and traumatic brain injury.

CRTASA – International Registry of Therapy and Service Animals

http://www.crtasa.com
Canadian Registry of Therapy Animal & Service Animals (CRTASA) is a centralized registry operating in Canada & US since 2010. It registers service & therapy animals and extends annual memberships to verified applicants that also receive a valid CRTASA Photo ID Card to readily confirm their rightful ownership of their official animal to a place of business. Service animals registered by CRTASA include guide dogs and other trained species (eg. helper monkeys, miniature seeing guide horses, etc..) CRTASA does not certify service animals – it only registers those already officially trained/certified to assist their owner with a disability. The standardized CRTASA Photo ID Card alleviates past confusion that variety of ID Cards (issued by different states, provinces and training facilities) posed for businesses across North America – many of whom were unfamiliar with the issuing body. CRTASA members also benefit from point of purchase discounts on animal products/services extended by participating CRTASA corporate fellows.

CSD

http://www.c-s-d.org
CSD (a.k.a. Communication Service for the Deaf, Inc.) was established in 1975, primarily to provide sign language interpreting services to deaf and hard of hearing adults in South Dakota. Today, CSD employs nearly 2,000 individuals in offices across the nation, providing a broad continuum of social and human services programs, as well as telecommunications relay and contact center services. CSD is a private nonprofit agency dedicated to providing quality services; ensuring public accessibility; and increasing awareness of issues affecting the deaf, hard of hearing and individuals with speech disabilities.

Cystic Fibrosis Foundation

http://www.cff.org/
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

Delano Regional Medical Center

http://www.drmc.com/
Delano Regional Medical Center (DRMC) is proud to be known throughout California and beyond as an innovative regional hospital, deeply rooted in the local communities and committed to providing an exceptional patient experience.

Department of Social Services & Health Services

http://www1.dshs.wa.gov/
The Department of Social and Health Services (DSHS) is a helping hand and lifeline for one out of every four Washington residents.As a single agency, DSHS is able to provide services from several programs to meet the multiple needs of the majority of clients.

Depression and Bipolar Support Alliance

http://www.dbsalliance.org/site/PageServer?pagename=home
The Depression and Bipolar Support Alliance (DBSA) is the leading patient-directed national organization focusing on the most prevalent mental illnesses. The organization fosters an environment of understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically-based tools and information written in language the general public can understand. DBSA supports research to promote more timely diagnosis, develop more effective and tolerable treatments and discover a cure. The organization works to ensure that people living with mood disorders are treated equitably.

Desert Regional Medical Center

https://www.desertregional.com/
As the regional medical center in the Coachella Valley, Desert Regional Medical Center’s vision is the continuous improvement of the health and well-being of the communities we serve. A commitment to clinical excellence shall be demonstrated through measurable quality outcomes, while ongoing financial stability will enable Desert Regional Medical Center to fulfill its mission and attain its vision.

Designs for Change

http://www.designsforchange.org/sped.html
DFC’s Special Education Reform Program provides assistance to families, principals, teachers, Local School Councils, and social service agencies to assist them in creating appropriate educational programs for Chicago students with disabilities to ensure that students with disabilities are educated in the regular education program and master the regular education curriculum, consistent with the most current federal law (Individuals with Disabilities Education Act or IDEA) and with the Corey H. Settlement Agreements. The ABLE Coalition: Advocates Behind Legal Education DFC encourages parents of children with disabilities to take advantage of training opportunities and join a parent support group. A parent support group will provide needed emotional support and valuable feedback and information from other parents. You will also get a better idea of systemic issues and how they impact on other children with disabilities. Parent group meetings are a great place to compare strategies and share stories from the field!

Divsion of Specialized Care for Children, University of Illinois- Chicago Rockford Office

http://www.uic.edu/hsc/dscc/
DSCC’s mission focuses on public service, education and research as a basis to provide, promote and coordinate family-centered, community-based, culturally competent care for eligible children with special health care needs in Illinois.

Doctors Baptist Hospital

https://baptisthealth.net/en/facilities/doctors-hospital/pages/default.aspx
Baptist Health South Florida is the largest not-for-profit health care organization in the region. Affiliates of the Baptist Health include Baptist Hospital of Miami, Baptist Children’s Hospital, South Miami Hospital, Homestead Hospital, Mariners Hospital, Doctors Hospital and Baptist Cardiac & Vascular Institute. Baptist Health also offers a variety of health care services, such as outpatient diagnostic and treatment facilities and home health care.

Doug Flutie, Jr. Foundation for Autism

http://www.flutiefoundation.org
Our primary goal is to promote awareness and support families affected by autism spectrum disorders. We are committed to funding organizations that provide direct services, family support grants, education, advocacy and recreational opportunities with the purpose of improving the quality of life for individuals with autism and their families.

Down Syndrome Foundation of Florida

http://dsfflorida.org
The mission of The Foundation is to empower lives for a brighter future by facilitating projects that enhance the welfare, education, health, and artistic and athletic abilities of individuals with Down syndrome. The vision of The Foundation is to create an environment where people with Down syndrome are included in every facet of the community. The Foundation provides several scholarships, informational and training workshops and an internet resource room related to the information and needs of individuals with Down syndrome and their families, professionals, and caregivers.

Down Syndrome Guild of Greater Kansas City

http://www.kcdsg.org
The Down Syndrome Guild of Greater Kansas City is a 501 c 3 nonprofit organization whose mission is to provide support and resources for individuals with Down syndrome and their families. DSG seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome.

Dyslexia-The Gift, Davis Dyslexia Association International

http://www.dyslexia.com/
Join us as we explore the positive talents that give rise to dyslexia, and share our knowledge about the best ways for dyslexic people to learn.

Dyslexia, The International Association

http://www.interdys.org/
The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. Our goalis to provide the most comprhensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge.

Dyspraxia Foundation

http://www.dyspraxiafoundation.org.uk/
The Dyspraxia Foundation is a country Wide charity, founded in 1987 as the Dyspraxia Trust by two mothers who met at Great Ormond Street Hospital for Sick Children. After being told that their children had Dyspraxia they were astonished and dismayed to discover that no facilities existed to help or inform parents and children with the condition. They decided to form their own group to help others to help themselves.

Dyspraxia USA NFP

http://www.dyspraxiausa.org
We are an organization that helps all people in the United states with Neuro Diverse learning conditions. We focus mainly on Dyspraxia a condition that affects 6 percent of the population and since I have the condition I decided it was time to make a stand for my people!We are here to educate,inform and make aware to all aspect of the community schooling and other sectors the hidden conditions that go unnoticed due to limited social know how!

Easter Seals of Tennessee

http://www.tn.easter-seals.org
The mission of Easter Seals Tennessee is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their community.

Easter Seals, Bay Area

http://bayarea.easterseals.com/site/PageServer?pagename=CABY_whoweare&s_esLocation=wwa_
Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years. Whether helping someone improve physical mobility, return to work or simply gain greater independence for everyday living, Easter Seals offers a variety of services to help people with disabilities address life’s challenges and achieve personal goals.

Eastern Blind Rehabilitation Center

http://www.rehab.va.gov/blindrehab/
The mission of Blind Rehabilitation Service is to coordinate a healthcare service delivery system that provides a continuum of care for blinded veterans extending from their home environment to the local VA facility and to the appropriate rehabilitation setting. These services include adjustment to blindness counseling, patient and family education, benefits analysis, comprehensive residential inpatient training, outpatient rehabilitation services, the provision of assistive technology, and research.

El Valor

https://www.elvalor.org//
El Valor is a non-profit community-based organization founded in 1973. El Valor is the first bilingual, bicultural rehabilitation center in Illinois. Their strategic goals are: to be the best in the nation in early childhood care in the Hispanic community; to become the premier organization developing leadership for the Hispanic community; and to be an international model for inclusion of people with disabilities in the Hispanic community.

Elwyn Delaware

elwyn.org
Elwyn is a unique organization. Founded in 1852, Elwyn has been providing services to people with special needs for over 150 years. Today, Elwyn is nationally recognized as a pioneer in developing groundbreaking programs for children and adults with disabilities and disadvantages. Our innovative culture and dedicated staff enable us to help more than 12,000 people build more independent, productive lives.

Empower Colorado

http://empowercolorado.org/
Empower Colorado is an organization created by families to support, educate, and provide resources for Advocacy for families. We define family as anyone who directly contributes to caring for children and youth who have, or are at risk for developing mental health disorders, also known as Brain Disorders. Children are not always diagnosed with a specific disorder but exhibit symptoms where they struggle with social, emotional, mental and/or behavioral challenges. Some of the common diagnoses our children have include: Bipolar Disorder, Major Depression, ADD/ADHD, Tourette’s Disorder, PDD Spectrum Disorder (Autism, Asperger’s Syndrome), Schizophrenia, Attachment Disorders (RAD), Fetal Alcohol Syndrome, PTSD and Trauma. Anxiety is one of the most common symptoms present in almost all of the diagnoses but in many cases it is also a disorder unto itself. Some of the common Anxiety Disorders seen in children include: Obsessive-Compulsive Disorder, Generalized Anxiety Disorder, Panic Disorder, Selective Mutism, Separation Anxiety Disorder and Phobic Disorders.

EP Magazine

http://www.eparent.com/
EP Global Communications, Inc. and Exceptional Parent magazine add perspective on the recent FDA public notification concerning adverse events reported in children with cerebral palsy who have received treatment with Botulinum Toxin (BOTOX®) injections.

Epilepsy Foundation

http://www.epilepsyfoundation.org/
“The Epilepsy Foundation will ensure that people with seizures are able to participate in all experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services.”

Epilepsy Foundation of Hawaii, Inc.

http://www.epilepsyhawaii.org/
The Epilepsy Foundation of Hawaii (EFH) provides direct services to individuals with seizure disorders. It is estimated that over 18,000 Hawaii residents suffer from epilepsy and over 75,000 people are touched by it. For over 20 years the EFH has provided information and educational services to individuals and groups with questions pertaining to epilepsy. The EFH is a private, nonprofit agency, whose mission is to increase public awareness of epilepsy and to build a sense of community, enabling persons with epilepsy to participate fully in the community at large.

Epilepsy, The Network

http://theepilepsynetwork.com/
This corporation is a non-profit 501(c)(3) public benefit corporation, organized for charitable purposes.The specific purposes for which this corporation is organized are to provide education, charitable assistance, encouragement, support, information, referrals, and advocacy for those touched by epilepsy.

Evanston Citizens for Appropriate Special Education

http://evanstoncase.org
Evanston Citizens for Appropriate Special Education (CASE) is a community advocacy organization working to improve special education policies and programs in pre-school, elementary and high school.

Familial Dysautonomia Now

http://www.fdnow.org
What is FD NOW? Ann and Ken Slaw and other FD families and friends founded the FD NOW fund at Partnership for Cures, a 501c3, to raise funds to support research that will drive better treatments and cures for patients with FD in two years or less.

Families helping Families of SWLA

http://www.fhfswla.org
Our mission is to provide information and referral, education and training, peer support and advocacy skills to individuals with disabilities and their families. Our vision is that individuals with disabilities and their families will be strong, effective, informed advocates for themselves and others.

Family Connection of South Carolina

http://www.familyconnectionsc.org
Having a baby is one of life’s greatest moments, and every parent dreams of having a happy, healthy one. So when a child with disabilities or special needs enters a family, at birth or diagnosis, it is rarely what the parents expected. Treasures are found in the unexpected, however, just as all children are a gift, Family Connection of South Carolina helps families recognize and celebrate the potential of that gift.

Family Network on Disabilities of Florida, Inc.

http://www.fndfl.org
Family Network on Disabilities of Florida, Inc. is a statewide network of families and individuals of all ages who may be at-risk, have disabilities, or have special needs and their families, professionals, and concerned citizens. Our mission is to ensure through collaboration that Floridians have full access to family-driven support, education, information, resources, and advocacy and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities described in section 602(3) of IDEA.

Family Resource Associates, Inc.

http://www.frainc.org
Family Resource Associates (FRA) is a New Jersey non-profit agency located in Shrewsbury, NJ. FRA assists individuals of all ages who have developmental delays or disabilities. FRA provides home-based early intervention for infants, therapeutic recreation programs and assistive technology services (through TECHConnection), along with family and sibling support groups. TECHConnection @ FRA offers programs and services that can make using the computer easier for people of all abilities and ages.

Family Support Network of North Carolina

http://www.fsnnc.org
Family Support Network of North Carolina promotes and provides support for families with children who have special needs. Families are in a unique position to offer information and support to other families. An experienced family member can share the most practical advice and help a parent navigate the complex service system.

Family Ties of Massachusetts

http://www.massfamilyties.org
Family TIES of Massachusetts is a statewide information and parent-to-parent support project for families of children with special needs and chronic illness. It is administered by parent coordinators housed in each of the regional offices of the Massachusetts Department of Public Health.

Family Ties of Nevada

http://www.familytiesnv.org
Increasing the hope, confidence and independence of people with disabilities of all ages and their circle of support through training, information, emotional support and advocacy. Discover helpful services & resources for you, your family or your clients with the Family TIES of Nevada Resource Directory.

Family to Family Network of Rhode Island

http://www.ric.edu/uap/F2F/home.html
Family to Family of Rhode Island is a network created by families for families of children and adults with special needs. We offer opportunities for families to connect with one another to share experiences, information, and/or support. Family to Family of Rhode Island is sponsored by Family Voices of RI and Paul V. Sherlock Center on Disabilities.

FEGS Human and Health Services

http://www.fegs.org
Long Island, NY region ONLY. FEGS is a UJA Federation agency that provides health and human services across the board. With partial grant funding from the Butler Foundation through UJA Federation, the Family Advocacy Information and Referral (or FAIR) program allows for a list of services to families with children, of any age, who have intellectual (cognitive) and developmental delays and/or learning differences. Such services are: I/R (information and referral), guidance and advocacy for C(P)SE meetings, guidance and advocacy for navigating the government systems such as Medicaid and SS(D)I, transitional case management from Early Intervention through post high school planning, assistance in applying for OPWDD eligibility and other LIDDSO services. FAIR also provides workshops for parents and trainings for professionals related to any topic in the special needs arena.

Fetal Alcohol Syndrome, National Orginization

http://www.nofas.org/
NOFAS is committed to raising public awareness of Fatel Alcohol Syndrome (FAS)- the leading known cause of menatl retardation- and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities throughout the nation.

Floortime Repository

http://www.floortimerepository.com
Online Social network and support group was created for parents and professionals who want to share ideas for engagement, and collaborate on educational goals and strategies using the dirfloortime model.

Florida Hospital Rehabilitation Center

https://www.floridahospital.com/rehabilitation
Our first responsibility as a Christian hospital is to extend the healing ministry of Christ to all patients who come to us. We endeavor to deliver high-quality service, showing concern for patients’ emotional and spiritual needs, as well as their physical condition. It is our desire to serve patients promptly, with consideration and dignity.

Florida Institute of Rehabilitation Education (FIRE)

http://www.firesight.org/
FIRE is a nonprofit agency dedicated to assisting people who are visually impaired or blind to achieve a maximum level of independence in their lives. Free services are provided on an outreach (one on one) or group basis and are provided without charge, without regard to individual or family income level, race, creed, age, disability or national origin.

Food Allergic Multicultural Society of Delaware

Foundation Fighting Blindness

http://www.blindness.org
The urgent mission of the Foundation Fighting Blindness, Inc. (FFB) is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.

Fragile X Alliance of Ohio

http://www.fragilexohio.org/
The Goals of the group are to: 1. Provide mutual support and information to Fragile X families in Ohio. 2. Promote the education and awareness of Fragile X Syndrome to physicians, therapists, educators and the general public. 3. Support and promote research on Fragile X Syndrome.

Fragile X Association of Dallas Texas

http://www.fragilex.org/2013/community-support-network/fragile-x-walks-across-texas/
The Texas Fragile X Association is made up of families and professionals who share a common goal of providing resources and education to those seeking guidance on Fragile X issues. Our members understand the everyday challenges of providing for children and adults affected by Fragile X Syndrome and our families strive to further the understanding of Fragile X by participating in various carrier and effected studies.

Fragile X Association of Georgia

http://www.fragilex.org/community/community-support-network/southeast/greater-atlanta-fragile-x/
The Fragile X Association of Georgia was formed in 1992 by Gail Heyman and Janet Schatten (parents) to provide resources and support for families and professionals who work with children and adults with fragile X syndrome. Working closely with research scientists from Emory University, Department of Human Genetics, the association sponsors a resource center, holds meetings for affected families, friends, teachers, and other professionals, and has established a Parents’ Network to provide support within the fragile X community.

Fragile X Association of Northern California

http://www.fragilex.org/
The Northern California Fragile X Association of California (NOCFXA) was formed by parents to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals. We also provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and to support scientific research on Fragile X Syndrome.

Fragile X Association of Southern California

http://www.fraxsocal.org/
Our organization was formed to promote public awareness of Fragile X syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X syndrome.

Fragile X Resource Center of Missouri

http://www.fragilex.org/community/community-support-network/southwest/fragile-x-resource-center-of-missouri/
The Fragile X Resource Center of Missouri provides support and information to individuals with FXS and their families. The Center offers annual workshops for teachers, therapists and parents. The Center also sponsors fundraisers that support research to understand FXS and find a cure, and that develop educational methods to enhance the abilities of persons with FXS. The Center is a not-for-profit organization currently run by volunteer parents of children with Fragile X. Our center hosts support group meetings throughout the year.

Fragile X Resource Group of Maine

http://www.fragilex.org/
The Maine Fragile X Resource Group is dedicated to providing educational and emotional support for those affected by Fragile X, promoting public and professional awareness, and supporting research toward improved treatments and a cure for Fragile X Syndrome.

Fragile X Resource Group of Maryland

http://www.mdfragilex.org/
The Maryland Fragile X Resource Group is a community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X. The group was founded in August of 1999 and currently supports 80 families. We welcome all who share this common interest and hope that you find the information presented on this site beneficial.

Fragile X Resource Group of New Hampshire

http://www.fragilex.org/
The New Hampshire Fragile X Resource Group is devoted to providing information and support for families and friends of individuals with Fragile X syndrome. We strive to increase awareness of Fragile X within the community by advancing the education of physicians, other professionals, and the general public. We seek to increase identification, support progress in research, and find a cure for Fragile X syndrome.

Fragile X Resource Group of South Florida

http://www.fragilex.org/community/community-support-network/southeast/central-florida-fragile-x/
The South Florida Fragile X Resource Group provides resources and support for families and professionals who work with children and adults with Fragile X syndrome in Broward, Miami-Dade, and Palm Beach counties. The group was begun in 2000 as part of Conquer Fragile X Foundation and since 2004 has been a shared resource of both National Fragile X Foundation and Conquer Fragile X Foundation.

Fragile X Resource Group of The Twin Cites in Minnetsota

http://www.fragilex.org/
The Twin Cities Fragile X Resource Group is a group of Parents of children with Fragile X, their siblings, extended Families and their friends that provide support and information to each other. We are in the beginning stages but we are a wonderful group that is committed to raise awareness about the Fragile X Syndrome.

Fragile X Society of Phoenix Arizona

http://www.fragilex.org/
The Fragile X Society of Arizona is represented by Cheryl Fisher who has a daughter with fragile X syndrome. She is a strong advocate and has successfully lobbied at the state and federal levels of government to improve funding for children with disabilities and for fragile X research. In an effort to raise awareness of fragile X in the local community, group members have participated in various programs including the Physician Residency Training Program and Pre-Service Teaching Program offered by Raising Special Kids.

Franklin Skilled Nursing and Rehabilitation Center

http://www.franklinhealthrehab.com/center/services
Our nursing center provides a full range of medical services to treat the residents who live with us and the patients who come to us for short-term, episodic medical or rehabilitative care. The care we deliver includes daily nursing, pharmacy, dietary and social services for all residents and patients, as well as a range of specific services. We invite you to visit and see for yourself the face of quality care.

Geneva Center for Autism

http://www.autism.net
Geneva Centre for Autism is an international leader in the development and delivery of training, support and clinical intervention services for individuals with Autism Spectrum Disorder.

George Washington University Medical Center

http://www.gwdocs.com/
The George Washington University Medical Faculty Associates (MFA) is the largest multi-specialty physician practice in Washington, DC that is conveniently located in one building. We are committed to providing the best possible, most comprehensive, and most convenient care to our patients.

Glenkirk

http://www.glenkirk.org/
Glenkirk’s mission is to provide quality, lifetime supports and services which empower individuals with developmental disabilities to participate fully in all areas of community life. Glenkirk will advocate for and provide support and service based on the principles of informed choice, personal dignity, responsibility and individualization thereby enhancing the quality of life for all those whom Glenkirk serves.

Goleta Valley Cottage Hospital

http://www.cottagehealth.org/
This 122-bed acute care hospital was founded in 1966 to serve the growing community of Goleta Valley. Today, we admit more than 2,000 patients a year, and see more than 17,000 emergency visits. We are also recognized for our comprehensive Breast Care Center and our level IV trauma designation. We take great pride in fulfilling our goal of providing each patient with comfortable, personalized care.

Green Door

http://www.greendoor.org/
Green Door is a community program that prepares women and men with schizophrenia, bipolar disorder, and other mental illnesses to work and live independently in the District of Columbia. Green Door is recognized nationally as one of the most successful programs for people with mental illness.

Hearing & Service Dogs of Minnesota

http://can-do-canines.org/
Hearing and Service Dogs of Minnesota has been helping people with disabilities through the use of assistance dogs since 1987. We work with individuals who are deaf, hard-of-hearing or physically disabled, pairing them with dogs specially trained to alert them to important sounds or assist them in the activities of daily living.

Helping Hands: Monkey Helpers for the Disabled, Inc.

http://www.monkeyhelpers.org
Helping Hands: Monkey Helpers for the Disabled, Inc. is a 501(c )3 non-profit organization that breeds, raises and trains capuchin monkeys as service animals for people living with paralysis due to spinal cord injury and mobility limiting disease. Established in 1979, Helping Hands provides service animals and lifetime support of each placement free of charge to recipients across the country.

Homestead Healthcare & Rehabilitation Center

http://homesteadrehab.com/
Our nursing center provides a full range of medical services to treat the residents who live with us and the patients who come to us for short-term, episodic medical or rehabilitative care. The care we deliver includes daily nursing, pharmacy, dietary and social services for all residents and patients, as well as a range of specific services. We invite you to visit and see for yourself the face of quality care.

Hope Delivery Systems, Inc.

http://www.hopedeliverysystems.com
Hope Delivery Systems, Inc. is a social service organization providing private pay client service and consultation in the form of education, advocacy, and therapy to the community – specializing in families with children, and adults on the Autism Spectrum while simultaneously developing The Hope Delivery Systems Foundation for extended community outreach and development.

Horizons for the Blind

http://www.horizons-blind.org
A not-for-profit organization founded in 1977 to improve the quality of life for people who are blind or visually impaired by increasing acessibilty to culture, education, recreation and consumer information on a national basis.

Huntington’s Disease

http://hdsa.org/
Huntington’s Disease Society of America Help for Today. Hope for Tomorrow. HDSA Mission — The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington’s Disease and their families. To promote and support research and medical efforts to eradicate Huntington’s Disease. To assist people and families affected by Huntington’s Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington’s disease.

Idaho Commission For The Blind And Visually Impaired

http://www.icbvi.state.id.us/Our mission is to empower persons who are blind or visually impaired by providing vocational rehabilitation training, skills training and educational opportunities to achieve self-fulfillment through quality employment and independent living; to serve as a resource to families and employers and to expand public awareness regarding the potential of all persons who are blind or visually impaired.

Idaho Parent to Parent

http://www.familiestogether.org
Families Together is a nonprofit organization that believes family involvement and support are essential for individuals with disabilities to reach their potential and maintain a life that is secure and meaningful.

Illinios Valley Center For Independent Living

http://www.ivcil.com/
An organization made up of persons with disabilities who enlighten other persons with disabilities and their families about their rights; to empower persons with disabilities to assume maximum responsibility to realize their potentials; and to enrich the lives of all person in Bureau, LaSalle, Marshall, Putnam and Stark counties in Illinois, by working toward full inclusion of each individual in society. Services provided: Systems and Individual Advocacy, Peer Counseling, Independent Living Skills Training and Information and Referral. Programs offered: Deaf Services, Community Reintegration, Personal Assistant and Youth Services.

Imagine: Innovative Resources for Cognitive & Physical Challenges

http://www.imaginecolorado.org/
The mission of Imagine! is to create and offer innovative supports to people of all ages with cognitive, developmental, physical, and health related needs so they may live fulfilling lives of independence and quality in their homes and communities.

Indiana Parent Information Association

http://www.aboutspecialkids.org/
Welcome to About Special Kids (formerly the Indiana Parent Information Network)! About Special Kids is a “Parent to Parent” organization that works throughout the state of Indiana to answer questions and provide support, information and resources.

International Craniofacial Institute Family Forum

http://www.icifamilyforum.com
ICIFamilyForum.com is an online support group that helps patients and families deal with Craniofacial Syndromes and Conditions. It is a place where these special people can connect with one another and get support and advice.

John Muir Medical Center

http://www.johnmuirhealth.com/
John Muir Health is proud to offer a wide array of inpatient clinical treatment services, advanced technologies, hospital and other medical facilities and equipment. We provide a broad spectrum of outpatient medical treatment services, medical research and community education and outreach programs and are dedicated to improving the health of the communities we serve.

Kentucky Department for the Blind

http://www.blind.ky.gov/
The Kentucky Office for the Blind is a state government rehabilitation agency that offers assistance to persons who are blind or visually impaired. We also provide various services for employers interested in hiring or accommodating workers who have a vision loss.

Kids Health- Auditory Processing Disorder

http://www.kidshealth.com/parent/medical/ears/central_auditory.html
KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence. Created by The Nemours Foundation’s Center for Children’s Health Media, the award-winning KidsHealth provides families with accurate, up-to-date, and jargon-free health information they can use. KidsHealth has been on the Web since 1995 — and has been accessed by about half a billion visitors. On a typical weekday, more than 500,000 visitors access KidsHealth’s reliable information.

LD Online

http://www.ldonline.org/
LD OnLine seeks to help children and adults reach their full potential by providing accurate and up-to-date information and advice about learning disabilities and ADHD.

Learning Disabilities Association of America

http://www.ldanatl.org/
LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.

Learning Disabilities, National Center for

http://www.ncld.org/
The site features content on implementing RTI from preschool to secondary; information for administrators, teachers, specialists, and families; unprecedented access to the nation’s top researchers and experienced implementers; as well as numerous networking opportunities to talk to colleagues nationwide.

Madison Area Down Syndrome Society, Inc.

http://www.madss.org
MADSS is a 501 (c)3 non-profit organization affiliated with the National Down Syndrome Society, theNational Down Syndrome Congress and theDown Syndrome Affiliates in Action. We are parents, siblings and relatives of people with Down syndrome and community leaders who want to make a difference in the lives of individuals with Down syndrome in the greater Madison community.

Maximum Potential Kids

http://www.maximumpotentialkids.com/
Maximum Potential has developed a video based autism training and curriculum platform that enables early intervention agencies or schools train their staff that works with children with autism. The program provides 5.5 hours of training that teachers staff best practices when working with students with ASD. The platform also contains 500+ fully customizable lesson plans that are compatible with the ABLLS-R.

Miami Lighthouse for the Blind

http://www.miamilighthouse.com/
Miami Lighthouse has an experienced management team. Its CEO and other senior management have demonstrated outstanding professional acumen in their respective fields. This team is dedicated to offering the most effective state-of-the-art techniques and care to persons who are blind or severely visually impaired, as well as its new initiative in eye wellness.

Minnesota Pacer Center

http://www.pacer.org/
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.

Mitochondrial Disease, United Foundation

http://www.umdf.org/site/c.dnJEKLNqFoG/b.3041929/
The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Mother Lode Rehabilitation Enterprises (MORE)

http://www.morerehab.org/
MORE is a private, non-profit organization dedicated to supporting persons with disabilities. MORE was established by a group of parents, educators, rehabilitation professionals and concerned citizens and first began serving adults with disabilities in 1973. The organization has grown from serving less than ten to now over 200 individuals on a daily basis. Our services include direct training in social, living and vocational skills. In addition, we assist the community in providing real life opportunities, including work, for those we serve.

Mums National Parent to Parent Network (Mothers United for Moral Support)

http://www.netnet.net/mums
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition. MUMS’ main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.

Muscular Dystophy Association

http://mda.org/
MDA is the world’s leading nonprofit health organization sponsoring research seeking the causes of and effective treatments for neuromuscular diseases. MDA research grants currently are supporting more than 250 projects worldwide.

NAMI Indiana

http://www2.nami.org/
NAMI Indiana is a non-profit grassroots organization dedicated to improving the lives of people afflicted by serious and persistent mental illness. NAMI Indiana consists of families, consumers, and professionals. We are dedicated to helping families through a network of support, education, advocacy, and promotion of research.

NAMI of Wisconsin

NAMI-Utah (National Alliance for the Mentally Ill)

http://www.namiut.org/
NAMI Utah is Utah’s voice on mental illness. Our mission is to ensure dignity and improve the lives of those who suffer mental illness and their families through education, support, and advocacy.

National Alliance for the Mentally Ill

http://www.nami.org
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country.

National Alliance on Mental Illness

http://www.nami.org
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life for persons of all ages who are affected by mental illnesses. NAMI members and friends work to fulfill our mission by providing support, education, and advocacy.

National Aphasia Association

http://www.aphasia.org/
The NAA’s mission is to educate the public to know that the word aphasia describes an impairment of the ability to communicate, not an impairment of intellect. The NAA makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment.

National Association for Continence

http://www.nafc.org
National Association For Continence is a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders. NAFC’s purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence. NAFC sends out a free electronic newsletter and prints educational materials, including pamphlets,a Resource Guide, and booklets. These booklets are disease-specific, covering continence care of people living with Spinal Cord Injury, Parkinson’s Disease, and Multiple Sclerosis. Visit our web site to find out more: www.nafc.org.

National Association of Private Special Education Centers

http://www.napsec.org/
Are you looking for an appropriate private special education placement for your child or client? Try NAPSEC’s free referral service! NAPSEC offers this service to parents and professionals who are looking for a placement for their child or client. Call (202) 408-3338 or e-mail napsec@aol.com

National Council for Community Behavioral Healthcare

http://www.thenationalcouncil.org/
National Council members serve nearly six million adults, children, and families in communities across America. We offer a vital safety net to some of the poorest and most vulnerable in our society — Medicaid beneficiaries, the uninsured, the destitute and homeless, children in foster care, older adults, those with HIV/AIDS, veterans, and those in our criminal and juvenile justice systems. The people our members treat live with their families or alone; some are in hospitals, jails, or juvenile detention facilities and others are in residential programs, foster care, or group homes.

National Family Caregivers Association

http://www.thefamilycaregiver.org
America’s family caregivers are family, friends, partners, and neighbors. To better understand the experience and the meaning of being a family caregiver go to The National Family Caregiver Story Project. The NFCA Story Project is a collection of first-person accounts by family caregivers. It is the gateway to becoming part of a growing group of family caregivers who have reached out to share their thoughts, feelings and find solace in the words of others.

National Institute of Arthritis & Musculoskeltal & Skin Diseases

http://www.niams.nih.gov
The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.

National Institute of Mental Health

http://www.nimh.nih.gov/
The National Institute of Mental Health (NIMH) is the largest scientific organization in the world dedicated to research focused on the understanding, treatment, and prevention of mental disorders and the promotion of mental health. NIMH supports innovative science that will profoundly transform the diagnosis, treatment, and prevention of mental disorders, paving the way for a cure. The NIMH mission is to reduce the burden of mental illness and behavioral disorders through research on mind, brain, and behavior.

National Organization for Disorders of the Corpus Callosum

http://www.nodcc.org
The NODCC is a nonprofit organization established in 2002 by professionals, parents and individuals affected by a disorder of the corpus callosum. Our mission is to enhance the quality of life and promote opportunities for individuals affected by the disorder. We work to raise the profile, understanding and acceptance of these disorders through education, advocacy and networking. We disseminate information and newsletters, host family conferences and facilitate family networking through our family partnership programs.

National Organization for Rare Diseases (NORD)

http://rarediseases.org/Mission Statement: The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

National Research & Training Center on Blindness Mississippi State University

http://www.blind.msstate.edu/
The mission of the RRTC is to enhance employment and independent living outcomes for individuals who are blind or visually impaired through research, training, education, and dissemination

National Resource Center on ADHD

http://www.help4adhd.org
The National Resource Center on AD/HD: A Program of CHADD is the nation’s clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (AD/HD). Funded through a cooperative agreement with the Centers for Disease Control and Prevention, the NRC provides information on this disorder which affects how millions of children and adults function on a daily basis. The NRC was created to meet the information needs of professionals and the general public.

National Spinal Cord Assocation

http://www.spinalcord.org/
At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education. Our education programs are developed to address information and issues important to our constituency, policy makers, the general public, and the media, and including injury prevention, improvements in medical, rehabilitative and supportive services, research and public policy formulation.

NCI Affiliates

http://www.nciaffiliates.org/
We at NCI Affiliates are dedicated to providing services that encourage and support individuals with disabilities, so that they may successfully achieve their personal and professional goals. To create caring and supportive pathway to success for people with disabilities so that they may build upon their individual strengths and gain the confidence they need to lead fulfilling and productive lives.

New Jersey Statewide Parent to Parent

http://www.spannj.org/support
SPAN provides support to parents/caregivers through: Offering emotional support and information to parents through a bilingual, multi-racial staff of parents of children with and without disabilities.Acting as a valuable resource to families, with targeted support to underserved families in Abbott districts and rural communities. Offering assistance in learning the necessary skills to help parents face the challenges of raising their child. Building a statewide network of parents supporting families of children with developmental delays, disabilities, and special health needs. Training parents of children with disabilities to help other parents.

Noble

http://www.mynoblelife.org
Founded in 1953, Noble expands opportunities and enhances the quality of life for people with disabilities and their families through individualized services. We serve approximately 1,600 children, adults and families in Central and Eastern Indiana annually.

Nonverbal Learning Disorder Association

North Carolina Division of Services for the Blind

http://www.dhhs.state.nc.us/dsb/
Since 1935, the mission of the North Carolina Division of Services for the Blind has been to enable people who are blind or visually impaired to reach their goals of independence and employment.

Northpointe Resources Inc.

http://www.northpointeresources.org/
Northpointe Resources, Inc. is a not-for-profit, publicly-funded provider of developmental disability and behavioral health services. Founded in 1953 by a group of concerned parents with a desire for quality programming, Northpointe has continued to grow this vision through our belief in the power of people and community.

Ohio Comission of Rehabilitation Agency

http://www.mih.ohio.gov/
The Commission is interested in funding projects which are innovative, culturally sensitive and specific in their approach toward reduction of the incidence and severity of those diseases or conditions which are responsible for excess morbidity and mortality in minority populations.

Ontario Federation for Cerebral Palsy

http://www.ofcp.ca
Ontario Federation for Cerebral Palsy is a non-profit, charitable organization which strives to address the changing needs of people in Ontario with cerebral palsy by way of the following core activities. (1) Assisting people with cerebral palsy and their families with education, funding for equipment, planning for the future, and accessing community services. (2) Funding assistance for Member Groups who provide services to assist people with cerebral palsy and other physical disabilities. (3) Supporting and funding the most advanced and highest quality cerebral palsy medical research. (4) Advocating and promoting awareness, understanding, and acceptance of persons with cerebral palsy.

Pacific Northwest Angelman Syndrome Foundation

http://www.pnwasf.org
Pacific Northwest Angelman Syndrome Foundation was formed in 1994 for the purposes of increasing public awareness of Angelman Syndrome (AS) and serving as a resource and source of support for individuals with AS and their families in the states of Washington, Oregon and Alaska. The organization is comprised of elected officers and directors, who serve on a strictly volunteer basis, and the membership is open to interested individuals, families and professionals. PNWASF is associated with the national organization, Angelman Syndrome Foundation (ASF) and has contacts with various other international AS organizations.

Parent to Parent of Colorado

http://www.p2p-co.org
We are a non-profit organization committed to quality Parent to Parent support across Colorado. We offer encouragement to each other on the journey of parenting our sons and daughters with disabilities or special health care needs. We do this by providing emotional and informational support, resources and by matching parents seeking support with a support parent.

Parent to Parent of Connecticut

http://www.pathct.org
PATH was formed in 1986 as an information and support network of families who have experienced a difficult pregnancy, premature birth, the loss of a young child or who have a child with medical needs, developmental delays and/or disabilities.

Parent to Parent of Maine

http://www.mpf.org
The Maine Parent Federation, Inc. is a statewide private non-profit organization that provides information, advocacy, education, and training to parents and professionals to benefit all children. We promote individual aspirations and community inclusion for people with disabilities. In existence since 1984, MPF is physically located in Augusta Maine, but assistance is available on a statewide basis.

Parent to Parent of New Hampshire

http://www.p2pnh.org
Learning that your child has special medical needs or a disability can be a traumatic experience. As a parent you may have questions and concerns about dealing with your child’s needs and your own feelings. You are not alone. We have been there.

Parent to Parent of New York State

http://www.parenttoparentnys.org
Parent to Parent of NYS is a statewide not for profit organization with a mission to support and connect families of individuals with special needs. There are 9 offices located across NY, staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs.

Parent to Parent of Pennsylvania

http://www.parenttoparent.org
Parent to Parent of Pnnsylvania matches parents and family members of children and adults with disabilities or special needs, to supporting parents, on a one on one basis, according to condition or concerns.

Parent to Parent of Virginia

https://ptpofva.wordpress.com/
Parent to Parent contact can help families regain their sense of strength, of purpose and of independence. Through its network of volunteers, and all of the staff of Parent to Parent of Virginia have a family member with disabilities and/or have a college degree in the field of disabilities.

Parents in Toto Autism Resource Center

http://www.parentsintoto.org
Located in Pennsylvania, our center provides supports and products related to autism spectrum disorders and related conditions generally not available elsewhere in one location. Our vision is to create a comfortable, welcoming environment where parents, diagnosed individuals, families, and friends can gather socially, educationally, and spiritually without judgment or prejudice. Please consult our website for more information.

Parents Reaching Out

http://www.parentsreachingout.org
Parents Reaching Out is a network of programs woven together to meet the ever changing needs of New Mexico families. We offer workshops and materials designed for families. We provide opportunities for connecting with other parents and resources in communities across our state. Our mission guides what we do to enhance outcomes for children and their families and build strong partnerships with the systems that touch their lives.

People Services

http://www.peopleservices.org/
The mission of People Services, Inc., is to serve as the local community agency, providing the delivery of quality services for people with disabilities. Our purpose it to improve the quality of life for people with disabilities by providing services that promote life exploration and informed choices. To offer an array of service options that are designed to meet the needs, wants and desires of the person served.

PKU Organization of Illinois

http://www.pkuil.org
The understanding of the developments with PKU and coping with the issues of the diet are critical for our families. On a quarterly basis, we publish a newsletter, The PKU Press, which serves as a forum for the exchange of new information, ideas, recipes and encouragement. Additionally, the Organization sponsors PKU cooking schools to better enable families to offer more variety and flavor while complying with the diet. The PKU Organization of Illinois is committed to the support of appropriate research initiatives to better understand PKU and eventually find a cure. Research initiative such as the Maternal PKU Project and Gene Therapy projects are supported and followed by the Organization.

Porterville Sheltered Workshop

Prader-willi Syndrome Association

http://www.pwsausa.org/
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members.

Propionic Acidemia Foundation

http://www.pafoundation.com
The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Queens Special Education Parent Center (QSEPC)

http://www.uwsofny.org/info_page.php?pageid=11
The Mission of UWS/QSEPC is to promote in the community and school system attitudes and practices that are inclusive to persons with disabilities, who are culturally and linguistically responsive to diversity. Ensuring that parents are knowledgeable of their rights and responsibilities under the Individual with Disability Education Act “(IDEA”) and other statues and regulations.