a sick girl's quest for normalcy

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Daily Archives: 20 December 2010

It’s kind of funny that my last post was all about heels and my enduring love for them, because today I spent the entire day in a pair of pointed-toe pumps.

But let me start at the beginning (and explain what makes this unbelievable occurrence even more extraordinary).

Saturday and Sunday, I worked my final two shifts at the large retail establishment at which I had worked for about three years; I worked eight hours on Saturday and nine hours on Sunday. It was kind of insane and illustrated just how far I’ve come since that first (again) shot of Enbrel a few weeks ago; the four or five hour shifts I worked around Black Friday left me exhausted and unable to move for the rest of the weekend.

Not this time.

After my shifts this weekend, I felt a bit sore, but nothing outrageous: My feet hurt a bit and my legs, but nothing more.

Today, I had an interview for a promotion within my company; to me, professional attire (and especially interview attire) will always mean heels. So, this morning, instead of looking sadly at my pumps before putting on a pair of flats, I put on my long pants, a silk top and a blazer (the tan one, not the black one; my psoriasis is acting up) and broke out a favored pair of more conservative pumps. Though I know they really had nothing to do with it, I’d like to think my heels—and the increased confidence they gave me—helped me nail the interview and get the promotion.

More likely, it was my hard work throughout the year and, if I’m honest, how much better I’ve been feeling lately. I would not have been able to drive for two hours, sit through a 30-minute interview, drive for another two hours and hang out at my office for six hours before driving 30 minutes home. No. Just a few short weeks ago, just getting up and going to work would have taken away so many spoons, I wouldn’t have many left over for much of anything.

Regardless, it was nice for my efforts to be lauded, nice to be able to wear heels again and so very nice to feel well enough to be up to both of those things.

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Disclaimer

I am not a doctor, a nurse or any other kind of medical personnel. I'm a patient. Don't take anything I say here as advice. Or, if you do, do it at your own risk.

Who, me?

I'm Nessie, a twenty-something who still seeks to maintain her love of style to express herself despite the challenges presented by psoriatic arthritis. I work as a journalist and love using a combination of words and photos to tell a story. Though sometimes it feels like my life has boiled down to being someone who has a chronic disease, I'm working on showing others — and sometimes myself — that I'm more than that. I am more than my disease.

Contact me

Drop me a line at NessiehasPSA [at] gmail [dot] com. I accept bribes in the form of cupcakes, cookies and gift certificates to Mod Cloth.