At least you have some protein and veggies. I think if it were me (and I'm definitely not as educated about all this as you and others are!) I'd really consider trying the formula. I don't know for sure that I'd do it, but...

Quote:

Originally Posted by changingseasons

That is INSANE to wait a year for an allergist appointment. And GAH! about your DP. That's super frustrating.

I might take him to the walk in clinic close to us. The wait can be a few hours to see a doc, but they are generally really good with referrals. Plus, there's one doc there that I love- as natural minded as I'd think a doc can get. It's a guy- I usually get wierded out and uncomfotable around men- even doctors- and I'm really comfortable with him.

And speaking of dp (and eggs ), the egg was at about 11am. J's cheeks are red and rashy (they've been good for a few days), and I'm seeing more bumps on his elbows, and possibly his belly (there were already some bumps). So yeah. I'm not calling it a fail yet, but it's looking that way. The last time ds had egg (mayo on a sandwich- that dp gave to him) it was about 6 hours later that I noticed his eczema was worse.

Dp agrees that food is a trigger, and that we should figure it out, and remove the foods. He just doesn't get it, I think, that "a little bit" can cause problems. And he doesn't know how to read labels, though since the mayo/sandwich thing, I thought he was getting better.

We've been giving ds2 bananas, because his diarrhea lasted so long, and I was freaked about him getting dehydrated, so we did sort of the BRAT diet. It seems to have worked- at least the diarrhea stopped. His eczema did get a little worse, which is consistent with all the other suspected banana reactions (even eating a lot of banana). Dp gave him a bite of his egg sandwich today Seriously dp? He said something like- "but it was a teeny teeny bite- he probably didn't even get any egg." And he put cheese on ds1's sandwich - "but it was a really thin slice." Sigh.

His sleep (ds2) has been awful. I don't know whether to blame it on him being sick or food. Something has got to give, though. We did add back oranges and carrots- maybe one or both are a problem. I'm stopping food journaling for a bit (I'm getting so sick of it), and just keeping out the list of suspects. I ave really high hopes that we got out all the eczema triggers, but we're missing a poop/sleep food (unless it is oranges or carrots).

So it could be the carrots or the orange or the egg or the cheese, right? Or were those two different children?

Quote:

Originally Posted by DevaMajka

And speaking of dp (and eggs ), the egg was at about 11am. J's cheeks are red and rashy (they've been good for a few days), and I'm seeing more bumps on his elbows, and possibly his belly (there were already some bumps). So yeah. I'm not calling it a fail yet, but it's looking that way. The last time ds had egg (mayo on a sandwich- that dp gave to him) it was about 6 hours later that I noticed his eczema was worse.

Dp agrees that food is a trigger, and that we should figure it out, and remove the foods. He just doesn't get it, I think, that "a little bit" can cause problems. And he doesn't know how to read labels, though since the mayo/sandwich thing, I thought he was getting better.

If wishes were horses, we'd have eggs the size of horses. No that's not the right quote. But I keep wishing DS could get eggs back.

One of our neighbors during the summer is like that. He'll say well it's got "a little of" this or that. His brother next door totally gets it, which is funny because the one who doesn't get it is a science teacher. You'd think it would make sense to him. And his best friend has a child with many IgE allergies with epi-pens. And he always looks at me quizzically like "why won't you eat my food?" Yet, his wife buys rice milk to have on hand when my kids visit them. I can't figure out if people just don't want to understand it or if they really just don't get it.

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)

Sounds like a good talk/plan. I still never looked into that treasure map thing. Have I told you how much I love 13yo moody girls? I should get her some more flower essences. Those were the only thing that helped. Today I'm making a new roast chicken recipe (new for me, one of Julia's with only a couple of minor modifications). DH just rearranged/cleaned DS's room. Now it's on to DD1's room (maybe, depends whether she stops crying or not). She said she wants DD2 in with her, and turn DD2's room into a playroom/library. We'll see how that goes.

Yeah, I hear you about moody girls, but mine is only 10 (11 in March)! For moodiness, have you tried B6 with her? I think one of the most noticible, remarkable improvements in mood for my DD has been the addition of B6 - it REALLY has helped her moods smooth out, and she doesn't get/stay so upset. Let me tell you, what a joy she has been to be around lately (for the most part; she is a kid after all!). We've really have a very enjoyable winter break! Have I told y'all how much I've love spending time with my family ?

When I was a teen (on depo) I was depressed, and b6 helped tremendously. I'm sure your dd isn't on depo, but I'm sure it's useful for more than that. lol.
And I've been meaning for a while to give you a big for all you've been going through. I was gone for a while and missed the details, so I didn't know how to "butt in," but I figured now is as good a time as any to tell you that I've been thinking of you and still am.

Quote:

Originally Posted by kjbrown92

So it could be the carrots or the orange or the egg or the cheese, right? Or were those two different children?

It could be the carrots or orange. Oh wouldn't it be fabulous if I get this figured out and get to actually sleep at night!! The egg was this morning, and cheese is a different child. Actually, wheat and dairy are the two things I'm relatively sure are safe for ds2.

I was reading today about foods that are cross reactive with bananas, and there are a few of them that I've strongly suspected J is sensitive to. Maybe I'm on to something here. He did react to something once (a band-aid maybe?) that could have had latex, but I assumed that it was just his skin reacting to having something on it. But he's been in the hospital 3 times recently, and not reacted to anything there, so maybe latex allergy is out.

oops, I spoiler alerted the rest by accident. lol. Yeah, I don't get how people don't "get it" in re: allergies. Even before all this with J, if someone told me they couldn't have X, I tried to work around it. It only would have taken once of them explaining the details for me to get how serious it was, even if it did take me a while to get it enough to actually cook for them. (ds2 has a gluten sensitive friend, and while I did go out of my way to make gluten free stuff for him, I used to give him soy sauce for his rice before his mom told me that caramel color might have gluten- stuff like that. But I never once said "oh, it's just a little bite of bread.")

When I was a teen (on depo) I was depressed, and b6 helped tremendously. I'm sure your dd isn't on depo, but I'm sure it's useful for more than that. lol.
And I've been meaning for a while to give you a big for all you've been going through. I was gone for a while and missed the details, so I didn't know how to "butt in," but I figured now is as good a time as any to tell you that I've been thinking of you and still am.

Quote:

Originally Posted by kjbrown92

So it could be the carrots or the orange or the egg or the cheese, right? Or were those two different children?

It could be the carrots or orange. Oh wouldn't it be fabulous if I get this figured out and get to actually sleep at night!! The egg was this morning, and cheese is a different child. Actually, wheat and dairy are the two things I'm relatively sure are safe for ds2.

I was reading today about foods that are cross reactive with bananas, and there are a few of them that I've strongly suspected J is sensitive to. Maybe I'm on to something here. He did react to something once (a band-aid maybe?) that could have had latex, but I assumed that it was just his skin reacting to having something on it. But he's been in the hospital 3 times recently, and not reacted to anything there, so maybe latex allergy is out.

oops, I spoiler alerted the rest by accident. lol. Yeah, I don't get how people don't "get it" in re: allergies. Even before all this with J, if someone told me they couldn't have X, I tried to work around it. It only would have taken once of them explaining the details for me to get how serious it was, even if it did take me a while to get it enough to actually cook for them. (ds2 has a gluten sensitive friend, and while I did go out of my way to make gluten free stuff for him, I used to give him soy sauce for his rice before his mom told me that caramel color might have gluten- stuff like that. But I never once said "oh, it's just a little bite of bread.")

Actually, with the exception of wheat-free tamari, all soy sauce has wheat in it as an ingredient, not just in the hidden form of caramel colour.

And I realized today that there are certain words of mine which are becoming Americanized. There are several words which should have Us in them (ie senior) to spell them properly the Canadian/British way, but the U now seems out of place to me. Ahh!!

Feeling a bit better this morning. DH got up at 7am to let me take a bath (because I thought it might help me feel better... It took away the body aches, which helped with the headache, so it did help.) then I sent him back to get some more rest when I got out again. Still not feeling great though. Considering folding the (2 weeks worth of) laundry that's sitting in the kids' play kitchen area but I really would just like to lay around.

eta: Sorry I'm not responding to much. When I was busy cleaning, I .. uh.. was busy cleaning. And after I stopped cleaning, I just sort of crashed. Guess I should've listened to my brain instead of trying to push it and get the kitchen done too but I so wanted to do something nice for myself (and I still never finished... of course *sigh*).

Wife of Michael , SAHM to Aristotle 09/99 Raphael 06/07 and Marius 05/09 Known only in dreams but never forgotten: Euphrates Decluttering 290/2010

Woefully behind on chat. Was hoping someone had started a January thread and I could start fresh there. Eeek.

Jess - how's her fat intake? Could you make a carrot puree and just load up on lamb fat? The key to satiation while on a lower carb diet is fat, fat, fat. Or, could you do a stew with the lamb meat & fat and the veggies all together?

We just started GAPS yesterday afternoon. Today is the first full day of Stage one of intro (Just broth, sauerkraut juice, boiled veggies and boiled meat). Tomorrow we get to add in raw egg yolk to the broth. Aevryn has been weepy and walking around all day asking for various fruits or chocolate chips. Poor thing is way more affected than I thought she was (since she gets minimal rashes, no poop problems and is generally cheery). Lily is in the best mood she's been in, in forever. She intellectually "gets" the aim of the diet/rebooting our guts, and is excited for what it hopefully means for the future. I'm thankful that she is understanding, because otherwise this would be impossible. I'm having problems myself with the cravings. I'm eating teeny drops of honey to get me through. (You're not supposed to do full intro while pregnant or nursing anyway, I keep telling myself. But, I don't think that means fantasizing about chocolate frosting is okay...)

Hope you all had nice holidays and are getting your new years off to great starts! Hope to "keep up" better now that holiday craziness is over.

Originally Posted by lil_miss_understoodeta: Sorry I'm not responding to much. When I was busy cleaning, I .. uh.. was busy cleaning. And after I stopped cleaning, I just sort of crashed. Guess I should've listened to my brain instead of trying to push it and get the kitchen done too but I so wanted to do something nice for myself (and I still never finished... of course *sigh*).

Hope you're feeling better soon. I do the same thing. Once I get on a roll.... I just can't stop. Then I crash and feel like crap.

Quote:

Originally Posted by menomena

Jess - how's her fat intake? Could you make a carrot puree and just load up on lamb fat? The key to satiation while on a lower carb diet is fat, fat, fat. Or, could you do a stew with the lamb meat & fat and the veggies all together?

I would say she's getting plenty of fat, but it's all on the meat she's eating.

Speaking of.... She didn't eat any meat for dinner last night (weird day- meal times were all crazy, so she had a late lunch burger and then leftover veggies before bed)... and she slept like.a.log. All night long- just over 12 hours. Barely even moved. What should that be telling me?

Mom to DD1 (10/07) and DD2 (3/11) I blog about our life with food allergies and eosinophilic disorders.

Speaking of.... She didn't eat any meat for dinner last night (weird day- meal times were all crazy, so she had a late lunch burger and then leftover veggies before bed)... and she slept like.a.log. All night long- just over 12 hours. Barely even moved. What should that be telling me?

Hmmmm.... that meat is harder to digest? I'd go with it and try to make that the plan if it works though. 12 hours?!?!? That's awesome!!

Back is killing me today. I'm sure it was all the cleaning I did yesterday when we moved the kids' rooms around. No, I didn't do any lifting of furniture. That was all DH and DD1. But I was moving books, vacuuming, dusting, and organizing.

DS has been having a lot of off days lately. Just weepy and leg hurting etc. I have to start journaling again I think. I'm worried that it's the carrots... last night was beef, carrot, white sweet potato stew. I used veggie broth and V-8 (no citric acid in the store brand I use). He had 3 bowls last night, and one for lunch at school today. Last night he said his leg was hurting, so I gave him some Advil before bed. This morning he said he didn't want to go to school (he was sick right before the break and missed 2 days of school). I told him to get up. He had breakfast and whined a lot. When he came home, I picked him up at the bus stop so he wouldn't have to walk home alone in the cold (DD1 was staying after for swim team) and he hit his head on the door getting into the car, and started crying and said he'd had a horrible day, and his feet hurt and his leg hurt, and UG. I gave him a big snack, more Advil, and sent him to basketball practice. We'll see how he is when he gets home. But I'm jumping to the conclusion that it's a food. And that new thing... gluth...whatever it was doesn't seem to have any affect at all.

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)

Yay for 12 hours of sleep. For dd, that seems to happen when she's REALLY tired, like either getting sick, totally busy/active day, or eating gluten or some such.

I'm trying to get the house under control (still) but this time it's in the form of first envisioning what I want it to look like, rather than the vague goal of 'decluttering.'

I'm loving pinterest, not only for collecting yummy looking safe recipes to inspire meal planning, but also as a form of online treasure mapping. It's just like it was made for me (and that's where I've been the last few days).

Dd is sick AGAIN, not sleeping well, coughing, runny nose. She's been in bed with us, which means I'm sandwiched between her and ds (and dh gets a corner by our feet, poor guy) and can't move. Now my back is really bothering me. Sorry that you deal with an ouchy back all the time kathy!

Glutathione... Before you pull it, try upping the dose like pb told me to? Increase till there's that bubbly/burning/too much HCl feeling then back off by one. It took a day or two on that dose (repeated 3x/day) and I felt soooo much better. She had it pegged as a biggie for me, though, what with all my oxidative stress going on.

And ds is cranky cranky crankypants. don't know if he's getting sick or if I took too many enzymes or everything is just too in flux or he misses dd (hiding out in her room, watching videos) or what.

Oh, and dd and I had a monumental battle, me insisting that she eat ONE cell salt before refusing them. She flat out refused in a primal, you can't control me sort of way. Then we talked (for the first time) about when she was a baby and we took her to the dentist and held her while she screamed and they scraped her teeth. She was a lot happier after that, and happily tried the salt (she was moving in that direction anyway, before the story). Control has always been a big, big thing for her, and this was a culmination of it. I wonder if that dentist experience was the start of it, and if talking it through finally will help her process it all and change some of the control stuff in the future. I can at least hope, right?

Gonna go clear the couch, clear and sweep the floor, start dinner (saucy meatballs with sweet potatoes and roasted cauliflower), and then think about making little mason jar terrariums for the window. I wonder if any herbs would grow well in those?

Glutathione... Before you pull it, try upping the dose like pb told me to? Increase till there's that bubbly/burning/too much HCl feeling then back off by one. It took a day or two on that dose (repeated 3x/day) and I felt soooo much better. She had it pegged as a biggie for me, though, what with all my oxidative stress going on.

The osteo said 1 twice a day. Maybe I'll see about giving him an extra one in the middle of the day on weekends. I don't know how to explain to him how to tell me when he feels that bubbly feeling....

Quote:

Originally Posted by changingseasons

I know- I was amazed. But she normally eats an entire steak by herself, plus a few veggies. I'm not sure that I can completely skip the meat for her last meal of the day on a regular basis.

eta: Oh- and someone just started a glutathione thread, and needs opinions on brands and things. I need some too. ;)

I have to find the thread. I'm just saying duplicate the pattern. And do meat in the morning and lunch and/or late afternoon, but not right before bed, and then do a "snack" or small meal of veggies before bed, and see if you get the same result again. I'm not saying cut out some of her calories. Just saying switching it around might be good for her.

Quote:

Originally Posted by WuWei

Did I miss a January 2011 Chat thread? We could wait until 1-11-11 for poetic effect.

That's a good idea!

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)

I totally forgot... I added some mag to her spiked honey yesterday for the first time. Maybe that was the magical sleep inducer? I guess we'll find out tonight- she had her usual steak and broccoli, and she had the honey w/mag earlier.

Mom to DD1 (10/07) and DD2 (3/11) I blog about our life with food allergies and eosinophilic disorders.

I haven't even read before this page. I just realized that the reason I feel busy is that I am. I cooked enough food today for 2-3 days and I need to do the same tomorrow, I'm visiting a friend for most of the day. Then Thursdays are busy again, so Wednesday I'll be cooking ahead more. It'll be good to have plenty of real, cooked food in the freezer (I've been winging it for WAY too long) but wow, cooking takes a lot of time, and I'm getting caught up on stuff like making kimchee and rendering lard--okay, that makes me feel better, I don't have to do either every week.

CS--before I got all behind, I saw you asked about formula. What are your reasons against? The non-real-food aspect is obvious, and it's got to be costly (is there any way to get help with the cost? maybe now that she's got a diagnosis, would some sort of insurance cover it?), are there other reasons too? Because it seems like it might be reasonable. It's not like you're going to give up figuring out why she's got an eosinophilic disorder, but as a stopgap for a while, it seems reasonable. But I may be, likely am, missing some of your concerns.

I need to finish up in the kitchen and then get to bed. So tired, even with a nap. Oh, maybe that's the lack of caffeine. Bummer. I think I'll be in bed by 10pm for my adrenals. Night-night all.

Kathy- I made the chicken recipe that you posted the other day.... yum. DP loved it too. Of course, how could anyone not love the combo of chicken, bacon, onions, and potatoes?!

Quote:

Originally Posted by tanyalynn

CS--before I got all behind, I saw you asked about formula. What are your reasons against? The non-real-food aspect is obvious, and it's got to be costly (is there any way to get help with the cost? maybe now that she's got a diagnosis, would some sort of insurance cover it?), are there other reasons too? Because it seems like it might be reasonable. It's not like you're going to give up figuring out why she's got an eosinophilic disorder, but as a stopgap for a while, it seems reasonable. But I may be, likely am, missing some of your concerns.

Yeah- mostly the fact that it's crazy highly-processed stuff. I'm guessing that her insurance would cover it, but not positive. Plus, it's supposed to taste like ass.... and I hate to have her love for food be destroyed because I'm urging her to drink something that's disgusting. AND the fact that I'm 90% sure she's not going to tolerate any of it, which means that we'll spend 1-2 weeks trialing each kind, with a couple weeks in between each one to get back to normal....

Mom to DD1 (10/07) and DD2 (3/11) I blog about our life with food allergies and eosinophilic disorders.

I just had a fairly bad reaction to something. I was driving back from picking up my Azure Standard order, eating dates I had just gotten (definitely cc), with a bag of chicken feed (definitely full of wheat) I grabbed from the dropsite for someone else, and I stopped at Goodwill to use the bathroom and check the tag sale. The bathroom reeked of fragrance from a cleaning product. After I peed, I went to wash my hands and looked in the mirror and my face, neck, chest, and ears were all red/blotchy and bubbly and I felt very hot, itchy, and faint. I washed my hands quickly and went outside. I was scared so I called my friend who I knew would be coming from the dropsite and asked her to stop and check on me. By the time she got there, my face wasn't very red anymore and I was feeling better so I decided to drive home. It's been about an hour and a half and all the redness is gone, I feel better but still a little itchy. Kind of freaked out though. Never had a reaction like that. I think despite the confounding factors, I am leaning towards a reaction to the cleaning product at Goodwill since it went a way fairly quickly once I was outside.

I did used to get panic attacks at the mall, and I know smell sensitivity was one of the main triggers. I haven't had any problems in a long time. The last time I can remember was almost 2 years ago when I was using Mrs. Meyer's cleaning product with geranium fragrance to clean the kitchen. I sprayed it and immediately got all light headed and hot. I didn't notice at the time if I turned red or anything, but this time I wouldn't have noticed how red I was except the mirror was right there.

Emily, cooking allergen free, knitting, reading, gardening Mom to 1 beautiful girl, born in the water on July 1, 2006 Wife to 1 handsome man since September 10, 2005

I just had a fairly bad reaction to something. I was driving back from picking up my Azure Standard order, eating dates I had just gotten (definitely cc), with a bag of chicken feed (definitely full of wheat) I grabbed from the dropsite for someone else, and I stopped at Goodwill to use the bathroom and check the tag sale. The bathroom reeked of fragrance from a cleaning product. After I peed, I went to wash my hands and looked in the mirror and my face, neck, chest, and ears were all red/blotchy and bubbly and I felt very hot, itchy, and faint. I washed my hands quickly and went outside. I was scared so I called my friend who I knew would be coming from the dropsite and asked her to stop and check on me. By the time she got there, my face wasn't very red anymore and I was feeling better so I decided to drive home. It's been about an hour and a half and all the redness is gone, I feel better but still a little itchy. Kind of freaked out though. Never had a reaction like that. I think despite the confounding factors, I am leaning towards a reaction to the cleaning product at Goodwill since it went a way fairly quickly once I was outside.

I did used to get panic attacks at the mall, and I know smell sensitivity was one of the main triggers. I haven't had any problems in a long time. The last time I can remember was almost 2 years ago when I was using Mrs. Meyer's cleaning product with geranium fragrance to clean the kitchen. I sprayed it and immediately got all light headed and hot. I didn't notice at the time if I turned red or anything, but this time I wouldn't have noticed how red I was except the mirror was right there.

Yikes!!

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)

I just had a fairly bad reaction to something. I was driving back from picking up my Azure Standard order, eating dates I had just gotten (definitely cc), with a bag of chicken feed (definitely full of wheat) I grabbed from the dropsite for someone else, and I stopped at Goodwill to use the bathroom and check the tag sale. The bathroom reeked of fragrance from a cleaning product. After I peed, I went to wash my hands and looked in the mirror and my face, neck, chest, and ears were all red/blotchy and bubbly and I felt very hot, itchy, and faint. I washed my hands quickly and went outside. I was scared so I called my friend who I knew would be coming from the dropsite and asked her to stop and check on me. By the time she got there, my face wasn't very red anymore and I was feeling better so I decided to drive home. It's been about an hour and a half and all the redness is gone, I feel better but still a little itchy. Kind of freaked out though. Never had a reaction like that. I think despite the confounding factors, I am leaning towards a reaction to the cleaning product at Goodwill since it went a way fairly quickly once I was outside.

I did used to get panic attacks at the mall, and I know smell sensitivity was one of the main triggers. I haven't had any problems in a long time. The last time I can remember was almost 2 years ago when I was using Mrs. Meyer's cleaning product with geranium fragrance to clean the kitchen. I sprayed it and immediately got all light headed and hot. I didn't notice at the time if I turned red or anything, but this time I wouldn't have noticed how red I was except the mirror was right there.

Glad you're ok and your symptoms left pretty fast.

Sand, Mom to three girls and a new SON!!!! Born on March 7th, 2011 I get to do these again: