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08. Nuevas políticas del cuidar (New policies of care)

Marian Barnes, sociologist and social policy expert, approaches the ethics of care from a perspective that transcends illness and economic hegemony. This publication includes two lectures give at the seminar on Ethics and the values of care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation.

07. Los niños y la investigación clínica: aspectos éticos

Conclusions and summary of the report entitled Children and Clinical Research, conducted by the Nuffield Council on Bioethics. Fundació Víctor Grífols i Lucas has sponsored the Spanish edition of this document.

Clinical research with children poses a great deal of ethical questions. The Nuffield Council on Bioethics has published a report entitled Children and Clinical Research, which analyses how clinical trials can be performed on children in an ethically acceptable manner. It addresses issues such as the role of the different parties involved, child protection and involvement and the constraints posed by these kinds of studies.

Publication aimed at parents, children and adolescents which summarises the main recommendations from the Nuffield Council on Bioethics regarding clinical research with children. The Spanish edition of this document is sponsored by Fundació Víctor Grífols i Lucas.

How can research studies on children be conducted in an ethically acceptable manner? Which role should children, young people and parents play in order to influence the way these studies are conducted? The Nuffield Council on Bioethics has examined these issues with a working group comprised of experts, and backed up by parents and young people. The results are outlined in the following report: Children and Clinical Research. This document, aimed at patients and their relatives, summarises the main conclusions.

The foundation has sponsored the publishing of this book that explores the positive and negative aspects of clinical research. Ranging from personal reflections made from the perspective of the patient, the investigator or the ethics committee, to innovative approaches to issues such as clinical trial design, how to reduce the complexity and how to analyze the benefit-risk balance of medicines.

Triacastela, with sponsorship from the Foundation, has published the Spanish version of Confessions of a Medicine Man: An Essay in Popular Philosophy. In his book, Alfred Tauber offers a personal introduction to the history of bioethics, to the evolution of the healthcare system in the United States and to the main 20th century philosophical schools of thought through illustrative autobiographical episodes in the life of a doctor.

Alfred Tauber is one of the main medical humanities authors in the United States. He is Professor of Medicine and Professor of Philosophy at Boston University and for many years he was director of the Boston University Center for Philosophy and History of Science. His book Confessions of a Medicine Man won the prize for the best academic book awarded by the American Libraries Magazine and also the American Medical Writers Association first prize.

03. Advice to health professionals caring for patients at the end of their lives

The Foundation has collaborated with the Bioethics Committee of Catalonia to publish the manual Recomendaciones a los profesionales sanitarios para la atención a los enfermos al final de la vida. [Advice to health professionals caring for patients at the end of their lives] The document is designed to help professionals caring for patients who are near the end of their lives, whatever the discipline or specialism.

The handbook has not been designed as a theoretical treatise or a technical protocol, but rather is intended to be a useful document which will help understand the values which should underpin care for those who are dying. The issues it considers include basical clinical decisions, providing assistance in different care settings, and clarifying some of the confusions regarding ethical and legal issues. The book has been published in Spanish and Catalan, and can be downloaded in PDF format.

Edited by Anne Davis, Verena Tschudin and Louis de Raeve, the book also includes the collaboration of several nursing experts.

It addresses cross-cultural issues in using specific ethics content. It also reveals the poverty of the present dualism model in nursing ethics and replace this with a more complex and more useful model that invites debate. Its scope is both wide and deep but that is needed to enrich the basis for teaching nursing ethics.

With the translation of Clinical Ethics, the Foundation and editorial Ariel have made this practical manual designed to confront ethical problems which arise in clinical practice more readily accessible to the Spanish speaking public. Clinical Ethics offers the method of the four parameters, some illustrated examples of clinical cases, the most widely accepted opinions on the most polemic questions of our time, reflections of an ethical nature and practical coverage of legal aspects. In short, a modern guide to ethics in medical assistance.

Ethical questions

Ethical questions

Rethinking the body

This publication reflects on different ways of understanding the body, from three different perspectives: the shift from the body as an object to the body as subject; the body from the artistic perspective; and the insights of psychoanalysis.

03. Surrogate pregnancy: an analysis of the current situation

Most coutries prohibit surrogate pregnancy also know as surrogate motherhood or "Mathers for hire". Due to this legislation many people travel to other countries where local legislation allows them to do this. Philosophers, doctors, lawyers and psycologists give their explanations on the current situation surrounding this assited reproduction technique.

02. Sexuality and the emotions. Can they be taught

This publication is the result of dialogue between a group of education experts with an interest in sex education. It is designed to offer a set of ideas, opinions and considerations on this subject to those responsible for educating children and adolescents (parents, teachers, sociologists, etc.).

01. What should we do with persistent sexual offenders

The Victor Grifols i Lucas Foundation offers the discourses from the workshop "What should we do with persistent sexual offenders?" This debate workshop formed part of the "Ethical Questions" series and was attended by the following participants: Enrique Echeburúa, Professor of Clinical Psychology at the Universidad del País Vasco; Mercedes García Arán, Professor of Law at the Universitat Autònoma de Barcelona; José María Mena Former Director of Public Prosecutions of the Catalonian High Court of Justice; Joan Carles Navarro, Director of Can Brians penitentiary and Santiago Redondo Illescas, full time Professor of Psychology and Criminology from the Psychology Faculty of the Universitat de Barcelona.

Monographs

Monographs

49. Publicidad y salud (Advertising and health)

During the last two decades, the world of communication has undergone a radical transformation, which has also affected the health sector. This has had an impact not just on medical advertising but also – more widely – on all publicity that has an impact on health and lifestyles. This publication reflects on the main dilemmas raised by this new situation.

Health systems have to prioritize, and are under a moral and political obligation to decide which services and which patients will receive preferential treatment given the inevitable fact that resources are limited. This monograph considers how to establish these priorities, combining theory and philosophical analysis with specific experience of resource distribution.

47. Ethics and plasma donation: an overview

Publication analysing the paid and altruistic models of plasma donation. Offers ethical considerations and describes the models that exist in Catalonia and the United States. Draws on contributions from industry experts, blood bank professionals, doctors, donors and patients.

This publication compares the two models of clinical ethics advice currently in use, and draws on experiences in Spain and internationally to analyse their compatibility. It includes special contributions from Joseph J. Fins and Juan Pablo Beca, who describe how the figure of clinical advisor in bioethics has been incorporated in the United States and Chile.

New genome editing techniques such as CRISPR/Cas9 open up a whole range of possibilities for human health. They can be used to correct genetic defects to cure disease, and also to modify individuals and entire plant or animal species. Who should be responsible for determining their use? Do we need to establish limits?

The Probitas Foundation and the Víctor Grífols i Lucas Foundation organized a workshop to analyze the impact of the crisis on the mental health of children and young people. The session also considered the need for close coordination between the health, social care and education systems to promote mental health among children and young people, and to detect risk situations at the earliest possible stage. This monograph includes the papers presented at the seminar.

43. ¿Debemos revisar el concepto de muerte? (Do we need to reconsider the concept of death?)

There are a number of controversial issues linked to the concept of death. This publication focuses on the ethical, medical, and legal questions linked to brain death and persistent vegetative states. It includes articles by James Bernat, Professor of Neurology and Medicine at the University of Dartmouth, and other experts from different professional spheres.

Iatrogenesis – the adverse effects caused by medical treatment – is often associated with professional errors or negligence. Paradoxically, one of the reasons for its increase is the rise of ‘defensive medicine', designed not to promote the well-being of patients but to protect medical professionals against possible claims. A number of professionals discuss this issue from a medical, legal and philosophical perspective.