Cancer Survivors Network - Comments for "Onc changes gameplan unexpectedly... a good thing?"http://csn.cancer.org/node/247550
Comments for "Onc changes gameplan unexpectedly... a good thing?"en-csnNathanhttp://csn.cancer.org/node/247550#comment-1287388
<p>We all know how you feel. We have all felt the same way and all have that doubt and scared feeling in the back of our minds. A few of us joke back and forth.It helps keep the optimism up. This is a terrible disease and no one knows when or if it will pop back up. Your feelings mirror a lot of what we all go thru. Please realize we may appear like ducks cool and calm floating on the pond,but believe me we are paddling like HELL underneath !!!!John</p>
Mon, 01 Oct 2012 13:50:31 +0000COBRA666comment 1287388 at http://csn.cancer.orgTomorrowhttp://csn.cancer.org/node/247550#comment-1287279
<p>Let us know how your day goes tomorrow if your up to it. </p>
Mon, 01 Oct 2012 01:38:58 +0000illeadcomment 1287279 at http://csn.cancer.orgRelaxing does helphttp://csn.cancer.org/node/247550#comment-1287249
<p>Thanks for letting me vent! After some intensive reading therapy this afternoon, I'm feeling much better! Nothing like a little diversion tactic to make everything a little better!</p>
<p>I sure was in a state, and the cold demeanor of my doctor sure did make me feel worse. I can only imagine how hard it must be for him to make these kinds of decisions for people knowing their livelihood teeters in the balance. I guess I would be cold at times too. I think I'll give him a second chance.. but if the PET's dirty, I'm gonna seek a second opinion and try something different. No reason to stagnate here!</p>
Mon, 01 Oct 2012 00:06:21 +0000Anonymous usercomment 1287249 at http://csn.cancer.orgHang in therehttp://csn.cancer.org/node/247550#comment-1287159
<p>To go through chemo like you have and then get vibes (whether right or not) that there may be a problem must be horrible. I think sometimes doctors forget that emotions are so fragile for us because they try to be as emotionless as possible, add steroids to the picture and yeow! Jim's video said it all. Your doctor also needs to know what he put you through. Be respectful but firm. In the end you own your body and you have the right to know what is going on. Like the others say tho, Lymphona reacts so well to chemo, that hopefully it is only the doctor's insensitivity that has you in such a state. Try to relax and enjoy today. We are all thinking of you. Bill and Becky</p>
Sun, 30 Sep 2012 18:18:07 +0000illeadcomment 1287159 at http://csn.cancer.orgCancer suckshttp://csn.cancer.org/node/247550#comment-1287147
<p>Hi Nathan,</p>
<p>Please don't feel you have to put on a "happy face" here. I know we can<br />
be a little overwhelming with "positivity" and "cheerleading" sometimes.<br />
I'm sorry you are still experiencing pain. </p>
<p>Cancer sucks big time. Thank you for sharing.</p>
<p>I hope you feel better soon.</p>
<p>Jim</p>
Sun, 30 Sep 2012 17:21:53 +0000jimwinscomment 1287147 at http://csn.cancer.orgYou're right.. the chances are good :)http://csn.cancer.org/node/247550#comment-1287107
<p>Hey Nikki,</p>
<p>I'm starting to feel a little less dirty from that chemo infusion, so I'm starting to see the bright side of this whole change in the game plan :) The thought of no more chemo is quite enticing!!</p>
<p>I was feeling very overwhelmed by it all, and I guess my confidence in my doc was shaken a bit. I just don't know if he completely understands how R-CHOP feels, but then again.. it's such a personal thing-- some people don't have any troubles. I just can't think of anything more disgusting.. I know these drugs are miracle workers, but I have felt some of the most unearthly feelings. It's almost like every cell in my body is begging me to pull out the chemo line and walk through a car wash a few times to get the ick out.</p>
<p>Now, for the time being, I should relax knowing it's my last treatment.. but then there's that looming PET scan. My cancer is on the top of my liver, pressing my lung. It still causes me referred pain in my shoulder. I don't think my doc believes that's there anymore-- heck, I don't even know. </p>
<p>This whole experience has been really tough on my mind. Everyone's optimism is appreciated, but it's blinding sometimes when faced with the reality that this might not all be over. It's like everyone around me is going "Yay! I know it's going to be gone!" while it's still causing me pain. </p>
<p>Whew. Anyways, now that that's off my shoulders.. I will say.. I am still working to keep my happy face. Not gonna let this silly cancer rule my life!</p>
<p>-Nathan</p>
Sun, 30 Sep 2012 15:08:02 +0000Anonymous usercomment 1287107 at http://csn.cancer.orgHello,http://csn.cancer.org/node/247550#comment-1287002
<p>My husband's oncologist gave me his email address. At times during his treatment, I would get so worried about something that I couldn't sleep. I would send him a quick email and he was always very responsive. One night I had his reply after only 3 minutes! Maybe your doctor will offer his email address to you.<br />
My husband had DLBCL stage 2. He was offered 6rounds of R-CHOP or 3 rounds plus radiation. He chose the latter. This type of cancer responds very well to R-CHOP. Because my husbands cancer was in his tonsil, the oncologist was able to actually see the site and thought he was probably already in remission after only one infusion! My point is, I think you should decide that this change in your treatment plan is good news. There is a very good chance that you're in remission and you are finished with treatment! Yippee! :)<br />
Wishing you the best, Nikki </p>
Sun, 30 Sep 2012 04:42:00 +0000nikkig43comment 1287002 at http://csn.cancer.orgOddhttp://csn.cancer.org/node/247550#comment-1286938
<p>My doc and NP were always very methodical and detailed with every step of my treatment. I cannot recommend anything better than button-holing him and asking,straight up, for a detailed account. Call and demand that he call you back, if you donot have an appointment soon. I would do this Monday morning.</p>
<p>max</p>
Sun, 30 Sep 2012 01:50:36 +0000Max Former Hodgkins Stage 3comment 1286938 at http://csn.cancer.orgGood luck - almost done!http://csn.cancer.org/node/247550#comment-1286927
<p>Hey Folks,</p>
<p>Good luck on your last treatment and your following scan(s)!</p>
<p>Jim</p>
Sun, 30 Sep 2012 01:05:59 +0000jimwinscomment 1286927 at http://csn.cancer.orgGreat Videohttp://csn.cancer.org/node/247550#comment-1286899
<p>Jim,<br />
I loved that video. I am sure you are a member of the "Sit Around With Your Finger Up The butt Club" as well. I don't know of anybody that isn't. LOL. John</p>
Sat, 29 Sep 2012 23:52:10 +0000COBRA666comment 1286899 at http://csn.cancer.org