Administrative Data Research Centre - Scotland

Abstract

Administrative data (that is, information collected primarily for administrative purposes) has long contributed to central government and other statistics. However in the last 15-20 years, technological advancement has seen something of a revolution with the formation of very large administrative databases held by central and local government, and by specialist agencies across the UK. The existence of such databases raises the possibility that administrative data could become, in an annoymised form, a core resource for social science academic research. Many northern European countries (notably Denmark, Finland, Norway and Sweden) are further ahead in this regard, as they have placed much greater emphasis on developing national 'register data' from the 1980s onwards, to replace national censuses and major surveys. For example, Statistics Denmark now bases most of its national statistics on 'register data' which can be linked both longitudinally and between registers of different types (e.g. health, education, income). Datasets with very similar potential now exist in the UK. They represent a rich potential research resource for the UK social science research community. However, on the whole, the academic social science community in the UK has had difficulty gaining access to these potential powerful datasets for a variety of reasons. In 2011 the Administrative Data Taskforce was formed with the 'aim of improving access to and linkage between government administrative data for research and policy purposes'. One of its recommendations was the formation of Administrative Data Research Centres (ADRC) in each of the countries of the UK.

A Scottish ADRC will aim to make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of policy. It will particularly focus on building trust between data providers, researchers and the public and will adopt the highest international standards of governance, professional practise and public engagement.

The ADRC will have a core service that will: - provide state-of-the-art facilities for research access to de-identified administrative data by accredited researchers - provide data management and statistical analysis support functions for external researchers accessing the data - engage in training, capacity building, and public engagement

and a set of developmental work packages that will: - conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets - Explore important aspects of the legal environment and public acceptability of the new linkages that the ADRC's will naturally be engaged with

it will do this through - A support unit providing researchers with a single, initial point of contact for the Scottish ADRC - A central team of data scientists - researching administrative datasets and supporting researchers through the support unit - A wide circle of collaborating academics - covering the spectrum of administrative data holding sectors driving forward the data scientists (central team) and bespoke research projects - A wider circle of academics/ researchers supported, trained and engaged by the ADRC

Planned Impact

Who will benefit from the work of the centre?The work and research carried out and facilitated by the centre will have an impact on charities, universities, government departments and independent public bodies. The aim will be to facilitate research that increases the effectiveness of public services and policy; ultimately enhancing quality of life, health and creative output.

How will they benefit from the work of the centre?

(1) Departments supplying administrative data to the centreFirst, the Centre will help to ease the resource burden on the data/statistics teams within the specified departments by filtering out inappropriate or incomplete requests for data from the academic community using specifications developed in conjunction with the government data/statistics teams.

Second, the Centre will allow commissioners of research within the departments to commission work from the academic community using new and innovative administrative datasets to answer key policy questions. Evaluations of government programmes by academic institutions will therefore be strengthened by increases in awareness of and availability of existing and new administrative datasets leading to a more robust evidence base for the government departments.

Third, a more robust evidence base build upon better and more innovative research will be to the benefit of policy makers who are tasked with developing and refining programmes and interventions to maximise gains within budgetary constraints.

(2) Policy makers in Scottish GovernmentIn addition to the government departments identified as data custodians, directorates that do not hold data will benefit from the evidence base that will be available through the work of the centre. For instance the Directorate for Local Government and Communities has a range of responsibilities with objectives that overlap with those of UK departments such as the DWP and the Scottish directorate for Employability, Skills & Lifelong Learning and thus require evaluating using indicators sourced from UK and Scottish level administrative data. The Centre will enable academic researchers undertaking these and other similar evaluations to request data form other government departments more easily and more quickly and thus facilitate more timely evaluation.

Particular directorates will benefit directly from the research of the centre for example information made possible by analysis of robust linked administrative data will provide a means by which local authorities and health care providers can better evaluate policies. The work of the informal care WP, for example, will provide insights that highlight if there are groups or geographical areas where informal carers have unmet needs. The work of the informal care package will also highlight the degree to which routinely collected data can provide a means of monitoring trends in informal care provision and inform policy developments at national and local levels.

(3) Policy makers and third sector organisations The Centre will similarly benefit local authorities and third sectors organisations who may wish to commission academic institutions to undertake more innovative research using administrative data with the resultant information being used to develop and refine programmes of intervention.

(4) The PublicWe intend within our public engagement programme to work with the public to jointly derive statistics, which though generated through standard objective research methods, are driven by the particular questions important to a community. The aim will be to allow communities to come to understand important aspects of society as it effects their lives but also importantly to empower them, through the provision of an 'evidence base', to impact the policy making process.

The discovery and developments emanating from the centre illustrate the diversity of research needs that emerge from the reuse of administrative data for research purposes. This has been recognised in the award of a follow-up grant to continue and enhance the research undertaken.

In 2017 we highlighted four examples of the research findings that are emerging from the centre: From the legal workpackage, a 2016 article in the Journal of Law and Society offers a novel means for data custodians to identify key considerations by introducing a decision-making template that supports public authorities' assessment of preparedness for data reuse through identification of challenges faced, related to sector-specific practices. This work has led the team being called upon by Scottish Government to help decision makers work within a complex environment of increasing pressure to make government data more open and accessible whilst also protecting citizens privacy.

The Public Engagement workpackage is uncovering the complexity of the public(s) attitude to the reuse of data for research purposes. For example, arguing that it is necessary to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research and/or researchers to be trustworthy. Work is also revealing that some of the received wisdom held by expert bodies, that the public is likely to always be resistant to certain types of particular reuse of data, may in fact be incorrect. If a system of good governance is in place and the reuse of data is associated with particular public benefit objectives, then topics that can seem controversial may actually be supported. Two recent international publications have used ADRC-S research (along with that of other organisations) to explore the public's involvement with and benefit from data intensive health research.

From the workpackage developing methods for producing synthetic data, there have been a set of published papers are demonstrating the possibility and utility of producing synthetic research for research. Importantly the workpackage has also developed a software package within the R statistical programming environment https://cran.r-project.org/web/packages/synthpop/index.html. This work has now been taken up by various government agencies and the NHS needing to release data for a number of different purposes for example for training or to enable software development.

From the workpackage developing new forms of historical linked administrative data, work on a new 1936 birth cohort has revealed that geographical movement and in particular movement to a major city or 'escalator region' has a positive effect on socio-economic position in adulthood. This is partially explained by a greater likelihood to move amongst those who were born into advantaged socio-economic position and those who achieve higher levels of qualifications but there still appears to be significant independent effect of movement. This leads to an interesting question about whether encouraging young people to consider the possibility of moving, might encourage greater social mobility. This work is starting to illustrate the great benefit that can emerge from the reuse of historical administrative data linked over a person's lifecourse.

Over the past two years there have been new discoveries and developments and we highlight some below:

• If administrative data cannot be used outside the National safe haven, this severely restricts its use especially for teaching or training. We have continued to explore the creation of synthetic data and how such datasets can be used in teaching and training using the synthpop software package (developed by the ADRC-S). In a breakthrough in 2017 we have gained permission, based on this research, to provide synthetic education and census data for training outside the Scottish safe haven. It was used for the first time in an ADRC-S training course - introducing a new generation to the power of administrative based research.

• A major problem for the ADRC-S has been the geographically limited points of access to data. In 2017 we have developed and opened ADRC-S Regional Safe Settings across Scotland. This provides researchers with the flexibility and opportunity to remotely access their ADRC-S project data through the National Safe Haven from different universities across Scotland. Most researchers in Scotland should now be no more than a short trip from a data access points. This has been further augmented by the development of SafePods, which will be rolled out in Universities across the UK and transform safe access to administrative data.

• The ADRC-S public panel has been invited to comment on a number of important developments in the Scottish data. For example they were invited to comment on the census 2021 census development and the administrative data census being carried out by National Records for Scotland. Work was undertaken to explore the public's view of commercial access to data through the ADRN - suggesting surprisingly high support.

• Through public engagement events and speaking to the public panel, the best means of communicating complex data and linkage processes to patients has been developed. For example the public panel was asked for input on the 'Blue Lights' project (which involves, Police, Fire and Ambulance services) and the panel were supportive of the project, even though the data would be detailed and might seem invasive.

• Work into end of life care, which analysed linked NHS and Census data, demonstrated that people in the most deprived areas of Scotland are more likely to die alone at home - i.e. significantly less likely to die in a care home or hospice than their neighbours in less deprived areas. Elderly people in poorer areas are anyway more likely to live alone and, as they reach the end of their lives, they seem not to have access to the resources that others have (e.g. finance, family of friends) to enable them to make the changes they may want to.

• Another exciting project being led by the ADRC-S is the linkage of millions of civil registration datasets to create large scale longitudinal and family studies. This involves probabilistically matching data fields (e.g. is this name the same as this one, so is this the same person or not). This process very quickly runs into a computing problems, despite modern computing capacities. Metric space indexing is a novel efficient way of doing record linkage without the need for extensive parameter tuning and is being developed by the team. This method suddenly opens up massive possibilities for very large comparison datasets.

• The same work package has also identified that 'Sibling group linkage' as practised by genealogists is a promising approach to automated population reconstruction. This was an interesting finding coming out of a series of meetings between 'traditional' genealogists and computer scientists. Approaches that have been more influenced by innovative computer science were, interestingly, not actually working very effectively, while algorithms based on this existing method seem highly effective.

• In order to understand whether the two techniques discussed above are scalable (i.e. can be used over the many millions of cases in the Digitising Scotland project), realistic and massive test data is necessary. We have established that it is feasible to produce statistically valid synthetic individual-level populations at country-scale. This shows potential for use in rigorous evaluation of population linkage techniques.

• The Aberdeen Children of the 1950s is a study of more than 12,000 people that has been running for over 50 years. The study includes data on the participants' birth, families, neighbourhoods, education, and health. We held a wide variety of outreach events, including a reunion, a new online social space, focus groups, interviews, and surveys. After a year of engagement, we have (a) presented the study's history and results; (b) gathered participants' views on data linkage and governance; and (c) used their stories of the important influences on health and wellbeing across their lives to shape future research.

• One of the major problems for the UK administrative data access system has been the need to seek new data sharing agreements for every new research project. This leads to long delays in data delivery. Work by the ADRC-S has established in fact that there are not fundamental legal barriers to the holding and 're-use' of administrative research datasets and indeed the public may see the 'use once and then destroy' approach as inherently wasteful, and not actually confidence-building as is often argued. These findings have influenced the shape and direction of the new ESRC investment in administrative data linkage, which is predicated on developing datasets for reuse.

• From work on the ADRC-S 'data ownership project' it has been found that there is a limited legal sense of ownership affecting behaviour among data sharing stakeholders. There is some intellectual property relating to datasets, but this is not used in the general dialogue about data. Likewise, there is very little use of 'ownership' in the sense of a financial commodity. In contrast, there is informal use of 'ownership' in terms of control in data sharing in three respects: participant protection; researcher recognition/reward; data quality. The perception of these three layers of control differs across different types of stakeholder (seen across the data-sharing communities studied). The report distinguishes between: the 'net producer of data for research', the 'net user of data for research' of data, the 'net funders of research', and the 'net stewards of research and research data'. These reflect the different relationships held between individuals (and institutions) about data.

• We have completed a prototype text mining component for analysing historical newspapers and tested it on sample data from newspapers from Aberdeen, Dundee and Edinburgh. We have demonstrated that you can characterise areas based only on words used in articles about these places in a fully automatic process.

• We have developed image processing workflows to extract buildings from the OS 1:25,000 1937-61 map series of maps held in scanned form by the National Library of Scotland. The workflow has been applied to maps across Scotland giving a mid C20th Scottish buildings layer. This means we can now automatically calculate small area estimates of measures as building density for most of Scotland and then other measures of environment insults such as air pollution for the 1930s. • Analysis of National Crime Agency (NCA) data on drug consignment identified in the postal system, linked to Scottish Index of Multiple Deprivation (SIMD), showed that places to which drugs consignments bought on the 'dark web' had been addressed were on average more deprived urban areas.

• We have analysed trends in placement stability for looked-after children. Results show distinct patterns of placements for children of different ages, and we have constructed a typology of placement types based on sequences identified.

• Work on a newly created 1936 birth cohort study has shown that childhood advantage, in terms of cognitive ability, predicts greater odds of being economically active at age 55 in both men and women. The contributions of early-life socioeconomic status and education differed between males and females. Early-life circumstances did not predict subsequent change in the odds of being economically active over the subsequent 20 years of life.

• Using the 1936 birth cohort, we found that at age 55, childhood advantage - including higher cognitive ability - directly predicted lower functional limitation odds. At age 65, adult socioeconomic circumstances partially mediated the associations between childhood advantage and functional limitation odds. At age 75, only socioeconomic circumstances - both from childhood and from adulthood - predicted functional limitation odds. These results demonstrate that early-life and adult circumstances are associated with functional ability in later life, and that these associations partly result from complex mediation.

• Using the 1936 birth cohort we found that the spatially-mobile had higher social class in adulthood than non-movers, although this was dependent on the destination of the move. Movers to Edinburgh were more likely to be in a high adult social class even when adjusted for individual characteristics. Social class outcomes of movers to Glasgow were associated with individual characteristics rather than place.

• We used administrative data on benefits and annual earnings from employment over a five-year period, from DWP's National Benefits Database and HMRC's P14/P60 data, which were linked to poverty survey data from Family Resources Survey 2010/2011 and its follow-up Poverty and Social Exclusion UK (PSE-UK) 2012. We have shown that longitudinal measures capturing benefit and earning histories have a close fit with recall questions on labour market histories. Furthermore, they are stronger predictors of poverty risks than measures based on current benefits or earnings. The findings suggest that longitudinal administrative measures would have potentially wide-ranging applications in policy as well as poverty research.

Exploitation Route

The primary focus of our research award is enabling research whose findings will be of use by policy makers in government, agencies, and in the civic, voluntary and charity sectors. The ADRC-S is heavily engaged with all these sectors to increase awareness and understanding of the potential of research using administrative data.

The ADRC-S has already expanded the in-Scotland cohort of trained and expert researchers in this field, through direct funding from the award and via support activities. This cohort is the basis of an ever-widening foundation to continue developing innovative methodologies and apply them in new research.

Papers presented at the ADRN's first open Annual Research Conference, organised by ADRC-Scotland for June 2017, demonstrated the wide interest from individuals from outside the ADRN, both outside Scotland and outside the UK, to understand the research emerging from the ADRC-S. Practitioners in these sectors are increasingly aware of the developing innovative methodologies and newly available datasets emerging via the ADRN and are wanting to apply them in new research; individuals and organisations have been keen to inform us of the topics to which they would like this enhanced capability to be addressed; and publications, engagement events and initiation of our planned follow-through funded developments will assure dissemination of research project results.

The ADRC-S is also actively organising high level policy engagement events or 'frontier meetings', bringing together researchers with those working on policy in the government and third sector organisations. These meetings have fed into cross UK collaboration and, in particular, progress in Scottish access to Whitehall data. We now have major initiatives with Scottish Government exploring issues of poverty and employability and the emergency services.

It is still quite early days for much of the research supported by the ADRC-S, nevertheless here are some key findings and how they might be taken forward or put to use by others that are emerging from research in 2017/18:

• The distant 'unequal gaze' of a data centre can produce the necessary security for the remote use of sensitive data. Regional safe setting and 'safepods' can therefore be used to produce functional anonymity in data and therefore access to personal and sensitive data. This dramatically increase access to administrative data in a safe and private manner.

• A public panel can usefully the inform decision making process on data sharing. Decision making panels are often uncertain about whether they are reflecting a 'public licence' to share data, even if there is a clear legal gateway. Public panels can help clarify this situation and therefore help with decision making that reflects public attitudes.

• Synthetic data can be used successfully within training programmes held away from the 'data centre'. Our work has shown that it is both possible to gain data releases and successfully use synthetic data for teaching and training. This means that data that previously was restricted in access to very small groups can be far more widely used. We now supply an easy-to-use software package to enable this, that is free for all to use.

• Funders can lead in generating data hubs - facilities and software innovation - to facilitate data sharing and open access, while recognising the different producer-user and funder-steward perspectives. Thus, data generators and data holders 'own' the data on the basis that the creation of the data set, and particularly the ordering of its metadata, is highly resource intensive, and must be recognised. The effort of data creation and data analysis merits recognition for those who expend the effort. Avenues for recognition of data creation are emerging (e.g. in journals, research audits and CV) but these are also inconsistent. Funders can push for such effective recognition.

• Open access, whilst an appropriate requirement for stewardship in public spending, can be at odds with the researcher's need for time to analyse and publish data. Some funders and data sharing agreements allow for a period whereby researchers have an exclusive right of "first publication" from their research. Such a practice is supported by this research, in that many researchers identify themselves as 'owning' the data, in that they have an expectation of a right to first publication of results that flow from their analysis and to work on the data. Accordingly, this should become standard practice in funding agreements and to encourage longer-term data sharing. The "open access" agenda requires careful rethinking to accommodate the range of stakeholder expectations and attitudes; alternative versions of data sharing may well be as legitimate as the current blanket OA agenda.

• We have recently signed an agreement with Findmypast to gain access to Aberdeen newspapers from the last century. This has enabled us to text mine information relevant to the 'Aberdeen Children of the 1950s' study. Our findings demonstrate that we can now characterise areas from newspapers alone. We show that, for areas that have no traditional sources of quantitative measurement data, we can now create rich information. This has significant implications for other historic studies worldwide.

• The development of image processing workflows to extract building information from the OS 1:25,000 1937-61 series of maps held in scanned form by the National Library of Scotland demonstrates the possibly of automatically generating very large scale GIS datasets that then can be used for lifecourse studies. This technique could be applied to any historic digitised map series globally.

• Our work producing detail sequences of placement types for looked-after children has demonstrated how this flexible analytical tool can used to produce deeper insights into complex temporal patterns. The findings from this study will be used by the Scottish Government to understand how they might plan services for children for whom the state becomes responsible for looking after, in order that the children's best interests are served.

Sectors

Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Education,Environment,Healthcare,Government, Democracy and Justice

The ADRC-S completed its five year grant at the end of October 2018 and is in receipt of a further award to continue and expand its research. ADRC-S work has influenced the structure and objective of the new ESRC investment, with its emphasis being on research for the public good that aligns with policy objectives and is based on analysis of research-ready datasets.
Goals set in the award to complete a new secure and safe infrastructure in Scotland based at the Edinburgh Bioquarter for linked data research have been completed, with enhancements to widen the service's accessibility beyond Edinburgh to regional safe settings now open also at St Andrews, Dundee, Aberdeen, Glasgow, Southampton and University College London. This will reduce the burden on researcher time and costs, and incentivise the development of new projects having increased flexibility of access to project data.
ADRC-S also leads on the development of The SafePod Network (SPN), which is an ESRC data investment to provide remote access to confidential and sensitive data from institutions and organisations across the UK through the provision of micro safe settings (known as SafePods™). SafePods replicate existing traditional safe settings but with the major benefit for researchers of providing local access to project data without the need to travel long distances. For Data Centres, SafePods provide a low cost standardised platform to extend remote access to their data. As all SafePods and policies are standardised, a single accreditation of a SafePod by a Data Centre is all that is needed to accredit the full network of SafePods.
A SafePod security features include door control access, CCTV camera and a secure area for the storage of IT equipment.
SPN will also be supported by a dedicated website to provide information and make SafePod bookings, a User Support Service and an Advisory Board to help steer the long term objectives of the network.
The initial roll out of SafePods across the UK is expected in the summer / autumn of 2019.
The impact and interest in the ADRC-S methodology and findings was demonstrated in the success of its 2017 research conference. The conference's impact was broad with, for example, the European Commission's participation with the EC's Joint Research Centre's 'Competence Centre on Micro Evaluation'. This should further stimulate Scottish-government focused effort in developing regional capability in using predictive analytics tools to improve policy outcomes in Scotland with research contributions from ADRC-S - this is an effort which has been building since ADRC-S jointly with UBDC began work with Scottish and New Zealand Government input in November 2015.
The ADRC-S's dedicated and shared space funded at 9 Edinburgh Bioquarter is used in intense collaboration with the FARR@Scotland, with the NHS National Service Scotland's research coordination team, and with the University's Usher Institute. The shared space has evolved into a fruitful venue of choice for 'pathfinder' and 'frontier' workshops. These have organised e.g. with other RCUK Councils for cross-disciplinary events with ADRC-S contributions - for example, with NERC on its call for 'Improving Health with Environment Data' and others (the "Innovative Healthcare Delivery Programme's Information Governance Summit" held at 9 Edinburgh Bioquarter). The former led to three projects in Scotland being supported, all of them interacting with and being supported by parts of the ADRC-S.
The legal work package team's public contributions include the exploration of issues in the governance and use of administrative data in the UK, with publication e.g. in the Journal of Law and Society. Solutions developed to help overcome the legal, ethical and practical barriers to accessing administrative data for research purposes have included development of a decision-making tool to assist data controllers while considering whether / on what basis to share administrative data; and a means to help them develop a public interest mandate for culture change within their institution as part of the wider UK public sector. For example, a workshop on this topic was held 26.4.2016 at 9 Edinburgh Bioquarter for Scottish public authorities tasked with implementing Public Records legislation. The 2017 annual report from the Keeper of the Records of Scotland references the our workshop, with substantial recognition of the ways in which the contributions arising from our research helped the local authorities communities understand cultures of caution and confidence around data access and sharing. The Scottish Government has used the team's outputs to engage with public authorities over data sharing initiatives. The team is leading the ADRN's development of a principles-based assessment tool to help ADRN stakeholders potentially to build a defensible case for a data retention policy, working with the ADRC-S public engagement (PE) team - and this is being used by public authorities across the UK.
The ADRC-S PE team has established and supports a very active ADRC-Scotland Public Panel; through which ADRC-S's transparent research practices and dialogue with publics are now spreading, helping rigorously to underpin ADRC-S research through training workshops and 1:1 advice and support to assist researchers in their public engagement activities and dialogues with non-specialist audiences. Linkage with health datasets is a significant component of administrative data research, and the PE team has supported Scotland's Public Benefit & Privacy Panel process via a Working Group that developed guidance to all health data stakeholders (controllers, processors and users) for them to better understand public engagement implications; new guidance, to be issued shortly, will help accelerate access to Scottish health data. One of the outcome of the workshops held throughout 2017 was the publication in 2018 of a multi-partner consensus statement on public involvement and engagement with data intensive health research.
The PE team joined with Aberdeen researchers to mount a historic re-engagement event 20.2.2016 with the Aberdeen Birth Cohort of the 1950s that has re-ignited wide awareness and interest in the potential of administrative data research. This engagement is ongoing, for example there was a public event held in Aberdeen in June 2018 to celebrate Scottish Health Research Cohorts as well as workshops with participants in the 1950s cohort study. The information generated by this research endeavour has been widely to inform work on further work on the development of large scale, non-consented, historical cohort studies for medical research. Our findings help our researchers to present to public audiences" we have been asked to input to the "Understanding Patient Data" initiative run by Wellcome Trust; and we were consulted on a recent Health Care Alliance Scottish Government video about the use of health data in research and care. This work is being used as an exemplar for engagement with members of historical studies by the Public Benefit and Privacy Panel for Health and Social Care (part of Information Services Division of NHS Scotland), and by the Farr Institute of Health Informatics. The Medical Director for NHS Grampian has since involved study participants in shaping the new Clinical Strategy for NHS Grampian. Furthermore, the Dementias Platform UK project is now collecting further participant views on data governance and study participation. This has excellent potential for policy impact by creating guidance for data custodians on expectations about data sharing and governance.
ADRC-S has worked with the ESRC's Phase III Big Data Investment 'Think.Data' to support development of the 'third sector' e.g. with the Scottish Civil Society Data Partnership, illustrated by our hosting a workshop on using own databases as research resources, and by our joining with the Scottish Council for Voluntary Organisations to host the "Cross-sector Roundtable on Health: how can data help the third sector plan and deliver the right services, and demonstrate impact". This work has led to further use of third sector data for research. For example, Citizens Advice Scotland is now allowing research access to its data in order to enable a better understanding of its clients.
ADRC-S has made use of its access to the significant Scottish historical datasets - the Scottish Mental Survey 1947 and the Aberdeen Birth Cohort of the 1950s - in order to investigate social mobility, health, and wellbeing across the life course. As an initial step, this project linked administrative records from the Scottish Mental Survey 1947 to records from the Scottish Longitudinal Study, which includes census and healthcare data, a linkage that helped create a data resource for further research. This research is producing important findings on the impact of early life conditions on later life outcomes and therefore current polices impacting children and young people.
Other ADRC-S work packages have been developing innovative methodologies - this work has led to new and innovative data products to emerge:
(1) Successive publications around the development of software to create synthetic datasets has aroused interest in Scottish government and health dataset controllers for its potential application in numerous settings. The package is being used quite widely by academics, the public sector and private companies in the UK and across Europe. The 'synthpop' package, freely available in R to produce synthetic data, is being used by the Northern Ireland Statistical and Research Agency, the NHS in Scotland and Cambridge Environmental Research Consultants, to produce non-disclosive research data. It is the software package of choice in a number of the training programmes provided by academics (external to the ADRC-S) Across Europe and the researchers who developed the package are in demand as speakers and trainers.
(2) The ADRC-S project deriving information automatically from digitised historical maps is working closely with National Library of Scotland to produce informative data from their crowd-sourced georeferenced maps series. This work has led to a NERC-MRC funded project looking at the long-term impact of air pollution on dementia risk, collaborating with the NERC Centre for Environment and Hydrology in extending their historical climate modelling approaches.
(3) ADRC-S research into how to link millions of civil registration datasets to create large scale longitudinal and family studies is starting to make an impact with preliminary results have been reported in the paper "Using Metric Space Indexing for Complete and Efficient Record Linkage" (Akgun et al.) accepted for the high-profile conference Pacific-Asia Conference on Knowledge Discovery and Data Mining (PAKDD), Melbourne, June 2018 and other work reported in a paper "Linking Scottish Vital Event Records Using Family Groups" (Akgun et al.) under review (second revision) for Journal of Historical Methods. Discussions are ongoing with the University of Umea (holders of one of the most significant historical longitudinal study in the world) around their use of our techniques and our use of their data to test whether our methods could be used in Sweden.
ADRC-S has secured access to new data from partners in the crime and justice sector (including from the National Crime Agency). This opens up new channels of research that were previously not possible.
Collaborations with the government agencies such as ScotXed in the education sector, and with National Records Scotland on developing linkages that can access Scottish census data, are bearing fruit.
ADRC-S contributed to the consultation on the Looked-After Children data management strategy and the data strand in the Child Protection Improvement Programme, as well as in the current development of new linkage between child protection data and the data held by the Scottish Children's Reporters Administration to advance understanding of what promotes secure placements for children who are looked-after away from home.
The work on end of life care has generated a great deal of interest in the past year, with the Research Fellow involved making presentations and talks to a wide range of publics (ranging from Scottish Government analysts to the general public at the Edinburgh Festival Fringe), and has generated interest in the media (newspapers, magazines, online content and podcasts).
New research partnerships have been developed e.g. with the Cash for Kids charity, with Education Scotland, and with What Works Scotland.
ADRC-S has brokered 3-way discussions at the Bioquarter between the Scottish Government, The Department for Work and Pensions (DWP), and ADRC-S researchers to help understand how datasets held by DWP might be researched to assist Scottish Government policy development, and how Scottish jurisdictional research might be an exemplar for wider UK application by DWP. These meetings have been followed up with training sessions on the use of DWP data. These discussions are impact processes of long gestation.
Inevitably publications and research findings from the research projects accessing these new datasets and emergent from these new partnerships are still unavailable, the activity of engagement with all these stakeholders has greatly increased their awareness of and built confidence in the capability and expertise of the growing cohort of researchers active in and with the ADRC-S internally and externally.

The methods and focus of these influential studies was directly influenced by prior work Pagliari & Cunnningham-Burley undertook with Ipsos Mori on public attitudes to administrative data sharing in Scotland.

Description

Multiple Deprivation Advisory Group

Geographic Reach

Local/Municipal/Regional

Policy Influence Type

Participation in a advisory committee

Description

National Data Guardian Review on Data Security and consent. (Nuffield Council for Bioethics)

Geographic Reach

National

Policy Influence Type

Participation in a advisory committee

Description

Predictive analytics for government

Geographic Reach

Local/Municipal/Regional

Policy Influence Type

Influenced training of practitioners or researchers

Description

Public Benefit and Privacy Panel

Geographic Reach

National

Policy Influence Type

Participation in a advisory committee

Impact

From 1st May2015, arrangements for scrutiny of applications to use NHSScotland originated data have changed. Community Health Index Advisory Group (CHIAG), NHS National Services Scotland Privacy Advisory Committee (PAC), and National Caldicott Guardians application processes have been merged. A single application and scrutiny process is now operated across Scotland by the newly formed Public Benefit and Privacy Panel for Health and Social Care.

In collaboration with the head of special collections at Aberdeen University library we have mapped available resources to be linked to the Aberdeen Children of the 50s database.

Title

Aberdeen Birth Cohorts

Description

The University of Aberdeen has followed all of the children born in Aberdeen in 1921, 1936, and 1950-1956 as they grow and age. Collectively these groups are known as the ABERDEEN BIRTH COHORTS, and are a jewel in the crown of Scottish health research and have helped to advance the understanding of aging well.

Innovate UK is a new integrated decision-making tool for urban health and policy evaluation.

Type Of Material

Data analysis technique

Provided To Others?

No

Impact

None as yet. The SME CERC leading the proposal will benefit directly through development of a market lead in a sophisticated spatiotemporal mapping and modelling platform to assess environmental exposure and health-risks, and the associated commercial income stream.

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

Heriot-Watt University

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

Information Services Division (ISD)

Department

Electronic Data Research and Innovation Service (eDRIS)

Country

United Kingdom

Sector

Charity/Non Profit

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

National Records of Scotland

Country

United Kingdom

Sector

Public

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of Aberdeen

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of Aberdeen

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of Dundee

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of Edinburgh

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of Glasgow

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of St Andrews

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of Stirling

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Dibben

Organisation

University of Stirling

Country

United Kingdom

Sector

Academic/University

PI Contribution

Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S).
The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement.
ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.

Collaborator Contribution

A wide variety of contributions will be made by individual collaborators. These include:
eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues.
National Records of Scotland - Are the third party for the linkage of administrative datasets.
Australian National University - Will provide expert advice for the linkage of administrative datasets.
Broadly, UK universities will deliver specific research aims as follows:
University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers.
University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study.
University of St Andrews - Dealing with uncertainty in automated linkage.
University of Glasgow - Research into incomes, benefits and the labour market.
University of Stirling - Research into the implications of caring for health and wellbeing.

Impact

The ADRC project will run from 2013 until 2018. The ADRC has currently:
i. Produced 7 publications.
ii. Created 1 software package.
iii. Been Involved in 8 engagement activities.

Start Year

2013

Description

ADRC Scotland - Gibb (Cash for Kids)

Organisation

Cash for Kids

Country

United Kingdom

Sector

Charity/Non Profit

PI Contribution

a proposed feasibility study to investigate the impact of cash grants or income supplements in terms of their effects on recipient households - do frailty oriented subsidies affect educational outcomes for their children?

Collaborator Contribution

a proposed feasibility study to investigate the impact of cash grants or income supplements in terms of their effects on recipient households - do frailty oriented subsidies affect educational outcomes for their children?

Impact

None

Start Year

2015

Description

ADRC Scotland - Gibb (What Works Scotland)

Organisation

What Works Scotland

Country

United Kingdom

Sector

Public

PI Contribution

on going interest by community planning partnerships already working with WWS to disucss scope for data linkage possibilities for their corss-sectoroal profiling and planning work.

Collaborator Contribution

on going interest by community planning partnerships already working with WWS to disucss scope for data linkage possibilities for their corss-sectoroal profiling and planning work.

Impact

None

Start Year

2015

Description

ADRC Scotland - McVie

Organisation

National Crime Agency

Country

United Kingdom

Sector

Public

PI Contribution

A proposal for research is currently in development. This will involve in-kind contributions of data from the NCA and involvement of their staff in terms of research input and writing.

Collaborator Contribution

A proposal for research is currently in development. This will involve in-kind contributions of data from the NCA and involvement of their staff in terms of research input and writing.

Impact

None.

Start Year

2015

Description

ADRC-S Regional Safe Settings (University of Aberdeen)

Organisation

University of Dundee

Country

United Kingdom

Sector

Academic/University

PI Contribution

Costs for SafeDesk

Collaborator Contribution

Room and staffing

Impact

n/a

Start Year

2017

Description

ADRC-S Regional Safe Settings (University of Dundee)

Organisation

University of Aberdeen

Country

United Kingdom

Sector

Academic/University

PI Contribution

Costs for SafeDesk

Collaborator Contribution

Room and staffing

Impact

n/a

Start Year

2017

Description

ADRC-S Regional Safe Settings (University of Glasgow)

Organisation

University of Glasgow

Department

Robertson Centre for Biostatistics Glasgow

Country

United Kingdom

Sector

Academic/University

PI Contribution

Costs for SafeDesk

Collaborator Contribution

Room and staffing

Impact

n/a

Start Year

2017

Description

ADRC-S Regional Safe Settings (University of St Andrews)

Organisation

St. Andrews University

Country

United States

Sector

Academic/University

PI Contribution

n/a

Collaborator Contribution

Staffing

Impact

n/a

Start Year

2017

Description

AMS Oversight Group

Organisation

Amazon.com

Country

United States

Sector

Private

PI Contribution

Part of new workstream: How does society use evidence to judge the risks and benefits of medicines

Collaborator Contribution

Part of new workstream: How does society use evidence to judge the risks and benefits of medicines

--- A tool for producing synthetic versions of microdata containing confidential information so that they are safe to be released to users for exploratory analysis. The key objective of generating synthetic data is to replace sensitive original values with synthetic ones causing minimal distortion of the statistical information contained in the data set. Variables, which can be categorical or continuous, are synthesised one-by-one using sequential modelling. Replacements are generated by drawing from conditional distributions fitted to the original data using parametric or classification and regression trees models. Data are synthesised via the function syn() which can be largely automated, if default settings are used, or with methods defined by the user. Optional parameters can be used to influence the disclosure risk and the analytical quality of the synthesised data.

Type Of Technology

Software

Year Produced

2014

Open Source License?

Yes

Impact

The synthpop package for R facilitates greatly generating non-disclosive entirely synthetic versions of sensitive restricted access microdata (e.g. the UK Longitudinal Studies) that can then be made more freely available for explanatory research and training. This can increase usage and impact of the unique and valuable resources.

"Inequalities in Ageing: An Example of the Social to Biological Transition? Taking a Life Course Approach Using Social and Biological Data"

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Professional Practitioners

Results and Impact

Post-SSLS conference workshop, discussing the use of life course approaches (such as SMS1947 cohort)

Year(s) Of Engagement Activity

2017

Description

"Myths and Realities of Public Sector Information Governance - Moving Beyond a Culture of Caution to a Culture of Confidence" at Capita's Public Sector Records and Information Management Conference

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Invited speaker to conference of information governance and records management professionals. Further opportunity to pilot our decision making matrix and develop future opportunities for engagement with Scottish public authorities.

"Reducing Risk and Minimising Harm to Individuals in Cross-Border Care: The Crucial Role of Good Governance in Preventing the Misuse of Patient Data" at the European Association of Health Law 2015

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Professional Practitioners

Results and Impact

Raised awareness of the research undertaken by the legal work package to ADRC-S and specifically about the research undertaken on the notion of harms arising out of the use of administrative data (in particular the use of health administrative data).

Article by Anna Schneider relating to a workshop at the BGS Spring meeting discussing the use of big data in geriatric research. Included a description of the 'Care at the end of life project'

Year(s) Of Engagement Activity

2019

Description

'Exploring Ear'oles Education

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

'Exploring Ear'oles Education: An investigation of the school-level educational outcomes of 'working class' pupils in contemporary Scotland.', Social Stratification Research Conference, Cambridge.

Audience developed knowledge of techniques to be used when analysing administrative data

Year(s) Of Engagement Activity

2016

Description

'Exploring inequalities at end of life care'

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Policymakers/politicians

Results and Impact

Presentation by Anna Schneider exploring the use of linked administrative date to understand inequalities in end of life care. Part of the CPC Brown Bag series made to Scottish Government and other researchers.

Year(s) Of Engagement Activity

2019

Description

'Scotland's most deprived 'more likely to die alone at home' "

Form Of Engagement Activity

A magazine, newsletter or online publication

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Public/other audiences

Results and Impact

An online article in the Guardian, by Anna Schneider, on deprivation and end-of-life care.

'The factors associated with entry to formal care for the elderly in Scotland: a longitudinal analysis'

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Other audiences

Results and Impact

Presentation of research findings at an Interdisciplinary Student Satellite session at an international conference held in Coburg, Germany

Year(s) Of Engagement Activity

2018

Description

'Working with administrative data'

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Postgraduate students

Results and Impact

Talk to students at Napier University by Anna Schneider on the 'care at end of life' project as a exemplar of the use of administrative data in research.

Year(s) Of Engagement Activity

2018

Description

A Public Interest Mandate to Support the Use, Sharing and Linkage of Administrative Data

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Other audiences

Results and Impact

Paper accepted as part of a Wellcome Trust/Liminal Spaces Symposium at the International Association of Bioethics Conference. As a result all speakers will coauthor a paper. As a result of this talk Ms Sharon Burton, Head of Policy for Standards and Ethics at the GMC has asked to work with us on deploying our decision-making tool for data custodians to help resolve issues in organisations working with the HSCIC.

A note on using the F-measure for record linkage and classification algorithms

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Seminar in the School of Computing, The University of St Andrews

Year(s) Of Engagement Activity

2017

Description

ADRC Scotland Retreat 2015

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Other audiences

Results and Impact

Opportunities for collaboration between ADRC and CSDP projects and networking of ADRC-S staff.

Year(s) Of Engagement Activity

2015

Description

ADRC conference retreat

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Other audiences

Results and Impact

The conference retreat helped members of the ADRC and collaborators to understand the areas of work ADRC Scotland are undertaking, to plan goals for the life of the project and to network. Staff had a better understanding of the work of the project and an opportunity to network amongst one another.

Year(s) Of Engagement Activity

2014

Description

ADRC conference retreat

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Other academic audiences (collaborators, peers etc.)

Results and Impact

The conference retreat helped members of the ADRC and collaborators to understand the areas of work ADRC Scotland are undertaking, to plan goals for the life of the project and to network.

Staff had a better understanding of the work of the project and an opportunity to network amongst one another.

Year(s) Of Engagement Activity

2014

Description

ADRC-S Public Panel meeting on Criminal Convictions data

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Public/other audiences

Results and Impact

Talking with public panel members about the potential for using criminal convictions research for public benefit allowed ADRC-S to take the panel's view back to government to help with negotiating access to this data

Year(s) Of Engagement Activity

2016

Description

ADRC-S Public Panel meeting on data retention

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Public/other audiences

Results and Impact

Talking with public panel members about the different data models that could be adopted allowed ADRC-S to take the panel's view back to help the task team discussion on this issue

Year(s) Of Engagement Activity

2016

Description

ADRC-S Public Panel on synthetic data

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Public/other audiences

Results and Impact

Talking with public panel about the use of synthetics data and the benefits, this has been used to feed into other work on synthetic data

Year(s) Of Engagement Activity

2016

Description

ADRC-S Public Panel to discuss crime and justice data linkage.

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Public/other audiences

Results and Impact

Public panel agreed that crime and justice data should be used for linkage projects that would be of significant public benefit. This helped in our endeavours to get access to crime and justice related data.

Year(s) Of Engagement Activity

2016

Description

ADRC-S blog on 'Its a criminal waste: how using administrative data about crime could better inform public policy'

Form Of Engagement Activity

Engagement focused website, blog or social media channel

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Public/other audiences

Results and Impact

ADRC-S blog on 'Its a criminal waste: how using administrative data about crime could better inform public policy

Anne McKenzie via ADRC-Scotland is now an International Advisor to the ADRNs Public Engagement activities

Year(s) Of Engagement Activity

2015

Description

ADS researcher training

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Other audiences

Results and Impact

The Administrative Data Service (ADS) provided researcher training to ADRC staff. Completion of the training is a requirement for access to ADRN data. ADRC staff had a better understanding of the responsibilities for handling sensitive data. Delegates are authorised to access and use ADRN data.

Year(s) Of Engagement Activity

2014

Description

ADS researcher training

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Other academic audiences (collaborators, peers etc.)

Results and Impact

The Administrative Data Service (ADS) provided researcher training to ADRC staff. Completion of the training is a requirement for access to ADRN data.

ADRC staff had a better understanding of the responsibilities for handling sensitive data. Delegates are authorised to access and use ADRN data.

Year(s) Of Engagement Activity

2014

Description

ADSW Adoption and Fostering Sub-Group

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

ADSW Adoption and Fostering Sub-Group

Year(s) Of Engagement Activity

2018

Description

AFA Legal Conference

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

AFA Legal Conference

Year(s) Of Engagement Activity

2018

Description

AQMeN hosted an event on data linkage using education data.

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Policymakers/politicians

Results and Impact

The workshop resulted in significant interest in developing further projects in the area of education and how it is linked with a variety of other topics, such as crime.

A press release, press conference or response to a media enquiry/interview

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Media (as a channel to the public)

Results and Impact

One of several interviewees quoted in a Nature article on the potential of Blockchain for science. Pagliari was interviewed following a talk at the Imperial Blockchain for Science symposium, in which she analysed the ethical and governance implications of these innovations.

Audience developed knowledge of techniques to be used when analysing administrative data

Year(s) Of Engagement Activity

2015

Description

Creation of a Public Engagement community of practice within Usher Institute

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Professional Practitioners

Results and Impact

A new community of practice within the Usher Institute is being established and ADRC-S PE WP team are part of this core group developing and leading this work

Year(s) Of Engagement Activity

2017

Description

Cross national research data: access, legality, ethics and opportunities

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Professional Practitioners

Results and Impact

Discussion about the difficulties of informed consent in the use of big data and pointed to alternative practices of a focus on public benefit assessment and engagement of discussion panels formed by members of the public to ensure ethical use of data.

Also provided an information exchange about the resource networks and practices around big data in UK and Germany and an extension of the professional network of ADRC-S.

Year(s) Of Engagement Activity

2016

Description

Data Debater: Health Science in Aberdeen, past, present and future

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Public/other audiences

Results and Impact

May Festival Public Discussion, hosted by University of Aberdeen. ADRC-S researchers made a presentation on health data in Aberdeen, followed by debate and discussion.

Year(s) Of Engagement Activity

2018

Description

Data Ethics and Health

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Postgraduate students

Results and Impact

Lecture given to Business and Medical Students. Imperial College,

Year(s) Of Engagement Activity

2017

Description

Data Linkage Scotland Showcase

Form Of Engagement Activity

Participation in an open day or visit at my research institution

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Policymakers/politicians

Results and Impact

The first joint 3-partner event by all the main organisations offering research and data linkage services to the academic, policy and wider communities in Scotland.

Engagement with third sector and ESRC civil society data centre. Stimulating interdisciplinary dialogue and engagement with third sector.

Year(s) Of Engagement Activity

2016

Description

Development of ADRC Scotland Public Engagement Panel

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Public/other audiences

Results and Impact

Awareness among the general public of the operations and aims of ADRC-S. Creation of structure for feedback into ADRC-s public opinion.

Year(s) Of Engagement Activity

2015

Description

Discussions with Centre for Inflammation Research regarding information for cancer research

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Better diagnostic techniques for lung cancer

Year(s) Of Engagement Activity

2015

Description

Discussions with Open Historical Street Map project

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Study participants or study members

Results and Impact

lead to better mutual understanding of each others objectives and potential synergies - OHSM keen on reuse of software being developed and application to their aspirations

Year(s) Of Engagement Activity

2015

Description

Dissussion on Health and Employment Retention in Scotland

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Meeting between various ADRC-S Researchers at University of Glasgow and Scottish Government representatives from Employability, Skills and labour Market Analysis teams. Objective was to discuss avenues to progress joint research on project 'Health and Employment retention in Scotland'.

Year(s) Of Engagement Activity

2018

Description

ESRC Festival of Social Science Event 'Scientists Have Your Data!'

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Public/other audiences

Results and Impact

Discussion and quiz about public benefit and use of data, with interaction with the audience and questions about data and the benefits of administrative data use in research

This is ongoing activity which is working towards encouraging Police Scotland and SFRS to share their data with ADRC-Scotland for a range of projects to be developed (particularly one on demand amongst blue light services).

Year(s) Of Engagement Activity

2016

Description

Engagement with Swansea University, Archaeology

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Professional Practitioners

Results and Impact

Potential reuse of our geocoding outputs

Year(s) Of Engagement Activity

2016

Description

Engagement with the Scottish Government's Building Safer Communities Programme Board

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Policymakers/politicians

Results and Impact

This is an ongoing activity that has involved multiple meetings, rather than one activity. Involvement in overseeing and providing strategic input to the development of safer communities planning in Scotland, including promoting opportunities to use linked data to build an evidence base. Work is progressing and it is expected to be developing some projects in this area in 2017.

Year(s) Of Engagement Activity

2016

Description

Engaging People for Innovation and Impact

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Empowering Innovation Conference. Involving patients in design of new digital technologies. Building european networks and impacting on developers in industry.

Two day workshop with senior researchers focusing on central and local government data. Examining the opportunities, risk and ethics of government data. Opportunities and Ethics of Big Data report produced by RSS. Proposals taken forward by the Science and Technology Select Committee.

Knowledge dissemination ADRC-S exposure. Further government projects coming to the ADRC-S.

Year(s) Of Engagement Activity

2015

Description

Exploring patterns of subject specific performance in school attainment in Scotland

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Other audiences

Results and Impact

Presentation at seminar at Edinburgh Napier University.

Year(s) Of Engagement Activity

2015

Description

Exploring the drivers of social and spatial mobility, and the impact on health in later life: Data linkage of the Scottish Mental Survey 1947 with the Scottish Longitudinal Study and other administrative data sources

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Policymakers/politicians

Results and Impact

Dr Lynne Forrest presented at the Centre for Population Change brown Bag Seminar on 31st May 2018- hour-long, in-depth presentation of research to researchers, Scottish Govt and post-grads etc

Year(s) Of Engagement Activity

2018

Description

FARR presentation at NHS-HE forum

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Better partnership working with NHS and academia

Year(s) Of Engagement Activity

2015

Description

Facebook community

Form Of Engagement Activity

Engagement focused website, blog or social media channel

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Study participants or study members

Results and Impact

created Facebook community for Aberdeen birth cohorts study group

Year(s) Of Engagement Activity

2015

Description

Facilitating access to administrative records with synthetic data (Dealing with Data 2017 Conference, University of Edinburgh)

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Communicating the concept and advantages of synthetic data as a disclosure control method facilitating access to sensitive data.

A press release, press conference or response to a media enquiry/interview

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Media (as a channel to the public)

Results and Impact

Interview with Frank Pasquale & Nic Terry for The Week in Health Law (Harvard). This popular podcast series is broadcast internationally and focuses on emerging issues at the intersection between health, technology and the law. The interview covered several eHealth and health data science in which ethical issues are raised, both in terms of privacy risks and positive opportunities for transparency and accountability.

Festival of Social Science event on learning to use crime and justice data using R

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Schools

Results and Impact

Impact was an increased awareness by and use of administrative and survey data on crime and justice by school children doing Advanced higher Modern Studies. Follow up events will be happening in 2017.

Year(s) Of Engagement Activity

2016

Description

Findr: Data Fair and Collaborator Speed-Dating Event

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Policymakers/politicians

Results and Impact

Presentation on WP5 work in extracting intelligence from historic maps

Year(s) Of Engagement Activity

2017

Description

First meeting of the Aberdeen Children of the 1950s participants panel

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Study participants or study members

Results and Impact

outreach to participants in the study, opportunity for participants to provide feedback on the study, revised large public engagement event per participants' suggestions.

Year(s) Of Engagement Activity

2006,2015

Description

Fortnightly Public Engagement Drop In Sessions

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Other audiences

Results and Impact

Upskilling of researchers from FARR and ADRC-S in expertise involved in research applications.

Year(s) Of Engagement Activity

2015

Description

Frontier Event on Poverty (with focus on child poverty)

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Policymakers/politicians

Results and Impact

A seminar that brought together different stakeholders whom would be involved in the development of a dataset that would enable policy relevant data to be linked and analysed to enable informed government decision making.

Year(s) Of Engagement Activity

2017

Description

Frontier event on employablity

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

A seminar that brought together different stakeholders whom would be involved in the development of a dataset that would enable policy relevant data to be linked and analysed to enable informed government decision making.

Year(s) Of Engagement Activity

2017

Description

Frontiers of Research on Urban Informatics

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Professional Practitioners

Results and Impact

Demonstrated the breadth of Big Data and the importance of linked administrative data

Presentation about conducting administrative data research as a research method in public health to an undergraduate/postgraduate audience at Hochschule Coburg, Coburg, Germany. The students were all studying in the faculty for health and social care at Hochschule Coburg.

A press release, press conference or response to a media enquiry/interview

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Media (as a channel to the public)

Results and Impact

One of several press articles drawing attention to a study by Pagliari and colleagues for USAID, analysing the uses of digital technologies and data for 'good governance' in developing country health systems. The research article was published in the Journal of Global Health.

Explore opportunities to link health and housing data, leading to future projects. Agreement to organise a workshop later in the year to take forward collaboration, with the support of the SFHA.

Year(s) Of Engagement Activity

2016

Description

Housing work stream

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

scoping the possibilities for houisng data linkage

Year(s) Of Engagement Activity

2015

Description

Housing work stream meta data disucssions

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

identifying data sources that can be linked and those that are dififcult t o access

Year(s) Of Engagement Activity

2015

Description

ISPCAN Conference (The Hague)

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Other audiences

Results and Impact

ISPCAN Conference (The Hague)

Year(s) Of Engagement Activity

2018

Description

Impacts of Patient Access to Health Records

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

European industry and policy engagement around benefits of granting access to their records. Dissemination of our research and informing european industry

Year(s) Of Engagement Activity

2015

Description

Incomes - Meeting with DWP on benefits data

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Furthered discussions for access to DWP data for ADRN project

Year(s) Of Engagement Activity

2012,2015

Description

Informal Care - Meeting with Care Inspectorate

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Information ascertained as to data collected by Care Inspectorate and potential to utilise that information

Year(s) Of Engagement Activity

2014

Description

Informal Care - Meeting with Marie Curie nurse

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Information was ascertained on anticipatory drugs used in end of life care, potentially useful in the care in the last days of life study.

Year(s) Of Engagement Activity

2015

Description

Informal Care - Meeting with Scottish Government health and social care integration team

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Policymakers/politicians

Results and Impact

Information ascertained as to plans for a single health and social care dataset being developed on behalf of the Scottish Government's integration team. Future collaboration set in motion that will involved ADRC-S drawing on data, and raising its profile to researchers.

Year(s) Of Engagement Activity

2015

Description

Informal Care - Meetings held with Scottish Government analysts

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Policymakers/politicians

Results and Impact

The end result was a proposal to use census and other linked data to understand household structure and place of death

Year(s) Of Engagement Activity

2014

Description

Informal Care - Meetings with Lothian health and social care data team

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Awareness raised as to data collected by local authority on their social care provision. We ascertained the willingness of the data holders to share data if possible, and a plan developed to enable access.

Year(s) Of Engagement Activity

2015

Description

Informal care - Meeting with data users and data providers

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Information ascertained as to the barriers facing those who collect data and those who use, or wish to use, that data in research. A paper providing an overview of the day was published (see outputs section)

Linking and using health and social care data in Scotland: charting a way forward

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

A group of academics, policy makers and data custodians came together to discuss their work and the challenges that they are experiencing with regards to moving forward the use of administrative data in health / social care research.

A raised awareness of the challenges of utilising health / social care data for research. Networks developed for future meetings on the subject.

Linking and using health and social care data in Scotland: charting a way forward

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

A group of academics, policy makers and data custodians came together to discuss their work and the challenges that they are experiencing with regards to moving forward the use of administrative data in health / social care research. A raised awareness of the challenges of utilising health / social care data for research. Networks developed for future meetings on the subject.

Year(s) Of Engagement Activity

2014

Description

MRC-HSCIC joint technical meeting

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Shaping HSCIC ways of holding and provisioning data to researchers

Year(s) Of Engagement Activity

2015

Description

Masterclass: Methods to Identify Causal Effects - Sascha Becker

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Audience developed knowledge of techniques to be used when analysing administrative data

Access to evaluation data and potential discounted access for academic researchers nationally. Subsequent approach to Jisc Collections by LIG and to ESRC. opportunity to license data for all UK HFE sector at discounted rate.

Meeting with Scottish Government Policy leads to ascertain questions that might be addressed using the Care in the last Days of Life Study

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Policymakers/politicians

Results and Impact

Meeting on 13/11/2019 between Iain Atherton and those with responsibility for informal and social care. Focus was on analysis that the dataset would make possible and how it might feed into their work

Year(s) Of Engagement Activity

2018

Description

Meeting with Scottish Government analysts and policy leads with responsibility for health and social care

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Policymakers/politicians

Results and Impact

Meeting held on 30/10/2018 between Iain Atherton and policy makers. Focus was on potential analysis and future linkages that would benefit informed policy making.

Year(s) Of Engagement Activity

2018

Description

Meeting with Scottish Government and others working in palliative care

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Policymakers/politicians

Results and Impact

A seminar that brought together people who have input into palliative care. Initial findings from the 'Care in the last days of life' study were presented and discussion generated as to future directions.

Year(s) Of Engagement Activity

2017

Description

Meeting with Scottish Government data analysts (1)

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Clearer understanding of ongoing work in informal care using administrative data. Links made between Scottish Government analysts and ADRC members.

Year(s) Of Engagement Activity

2014

Description

Meeting with Scottish Government data analysts (1)

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Clearer understanding of ongoing work in informal care using administrative data.

Links made between Scottish Government analysts and ADRC members.

Year(s) Of Engagement Activity

2014

Description

Meeting with Scottish Government data analysts (2)

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

This was the second working group meeting on using administrative data for informal care research. The meeting gave greater policy focus to the exemplar study. Development of greater networks and relevance to national policy.

Year(s) Of Engagement Activity

2014

Description

Meeting with Scottish Government data analysts (2)

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

This was the second working group meeting on using administrative data for informal care research. The meeting gave greater policy focus to the exemplar study.

Development of greater networks and relevance to national policy.

Year(s) Of Engagement Activity

2014

Description

Meeting with Scottish Government officials, University of Glasgow, 25.05.2017

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Professional Practitioners

Results and Impact

The meeting was organised to discuss analytical needs and possible synergies with Scottish Government in relation to forthcoming schemes of 'Single Health and Work Gateway' and 'Fair Start Scotland'

Year(s) Of Engagement Activity

2017

Description

Meeting with Scottish Government to discuss potential new data linkage opportunities

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Proposals for data linkage involving the SCJS are now being considered by Scottish Government. further meetings are to take place.

Year(s) Of Engagement Activity

2015

Description

Meeting with Scottish Sensory Centre to discuss data linkage

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Meeting with Scottish Sensory Centre to discuss data linkage

Year(s) Of Engagement Activity

2015

Description

Meeting with Wellcome Trust understanding patient data to offer expertise and guidance on explaining data linkage and TTP to public audiences

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Public/other audiences

Results and Impact

The Understanding patient data (UPD) team at the Wellcome Trust are developing videos for the public and wanted to know how we explain data linkage and TTP to public panels and audiences

Year(s) Of Engagement Activity

2017

Description

Meeting with West Lothian Council about data sharing

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Public/other audiences

Results and Impact

Awareness of ADRC-S and in principle agreement to work with us

Year(s) Of Engagement Activity

2015

Description

Meeting with all LA Data Providers ( LASW meeting)

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Meeting with all LA Data Providers ( LASW meeting)

Year(s) Of Engagement Activity

2018

Description

Meeting with digital services manager at City of Edinburgh Council to explore and manage collaborative projects - weekly

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Policymakers/politicians

Results and Impact

Ongoing activity to identify opportunities for releasing and analysing Council data, especially as open data, and for collecting new quantitative and qualitative data that contributes to Council policy objectives. Has led to new datasets being published on Council open data portal and to further engagements with different Council departments.

A proposal has been drafted and is due to be discussed with NCA before submission to the PBPP.

Year(s) Of Engagement Activity

2015

Description

Meeting with the Office of the Scottish Charity Regulator (OSCR) (10.8.2017)

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Policymakers/politicians

Results and Impact

Discussion with the regulator about making more use of their administrative data, and data sharing.

Year(s) Of Engagement Activity

2017

Description

Meetings to discuss CLAS assessment for FARR and ADRC Scotland

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Ensuring Scottish National Safe Haven can hold official sensitive data

Year(s) Of Engagement Activity

2015

Description

Mental Health Data Science group

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Future grant applications

Year(s) Of Engagement Activity

2015

Description

Ministerial Pharma Forum

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Bettter partnership working between industry, NHS and academia and achieving better safety in medicines

Year(s) Of Engagement Activity

2016

Description

Myths and Realities of Public Sector Information Governance - Moving Beyond a Culture of Caution to a Culture of Confidence

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Provided a 'legal myth-busting' talk and unpicked some common misconceptions around data protection law within the research setting.

Year(s) Of Engagement Activity

2016

Description

NHS Benefits Realisation Taskforce meeting

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Leading to changes in NHS practice

Year(s) Of Engagement Activity

2015

Description

NHS Digital Academy; Realising the Vision

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Health Informatics Society of Ireland

Year(s) Of Engagement Activity

2017

Description

NHS Research Scotland Conference

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Wider awareness in NHS of use of routine data for research purposes

Year(s) Of Engagement Activity

2015

Description

National Clinical Imaging dataset meeting

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Development of a new research resource covering Scottish Population to 2010

Year(s) Of Engagement Activity

2015

Description

National Research Council of Spain and Statistical Institute of Andalusia visit / presentation

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Professional Practitioners

Results and Impact

This has led to further collaboration between the Institute and the ADRC. There are ongoing discussions about sharing technologies, in particular synthpop and eDATAshield with the institute. And helped with the Institute being a partner on a recently awarded horizon 2020 ITN award. Supported collaboration on the recent horizon 2020 ITN award.

Year(s) Of Engagement Activity

2015

Description

ONS Secure Researcher Training

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Postgraduate students

Results and Impact

SLS Team Member Lynne Forrest and colleagues from the ADRC-S ran Secure Researcher Training courses on 12/12/18, 25/1/19, 1/2/19, 15/2/19 and 22/9/19 - these were a series of 1-day training courses to accreditate researchers (required to access ONS, SLS, health data)

Outreach to participants in the study, opportunity for participants to provide feedback on the study

Year(s) Of Engagement Activity

2015

Description

Open Knowledge Edinburgh Meet-up (3)

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Professional Practitioners

Results and Impact

Ongoing activity to build a cross-sector community around the use of open data and open knowledge approaches. Events are hosted by partners: National Library of Scotland, Codebase, City of Edinburgh Central Library

Year(s) Of Engagement Activity

2016

Description

Over the counter genetic tests raise human rights concerns

Form Of Engagement Activity

A press release, press conference or response to a media enquiry/interview

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Media (as a channel to the public)

Results and Impact

Article in The Ferret magazine based on an analysis by Pagliari & Hall on misleading advertising and lack of transparency in direct to consumer genetic tests. The research was presented at the European Human Genetics Association conference in 2016 (marketing paper) and in the European Journal of Human Genetics in 2017 (analysis of compliance with the Human Genetics Commission's ethical guidelines). Dr Pagliari was interviewed for the report.

Year(s) Of Engagement Activity

2016

Description

Paper presented to ADRN Conference, Belfast

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Patients, carers and/or patient groups

Results and Impact

Ideas regarding analysis of dataset being developed for "Care in the last days of life" study developed.

Year(s) Of Engagement Activity

2015

Description

Parental socioeconomic influences on filial educational attainment - An investigation of Scottish young people and patterns of school level educational performance

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Other audiences

Results and Impact

Presentation at International Conference.

Year(s) Of Engagement Activity

2015

Description

Participant Newsletter

Form Of Engagement Activity

A magazine, newsletter or online publication

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Study participants or study members

Results and Impact

outreach to participants in the study, opportunity for participants to provide feedback on the study

Year(s) Of Engagement Activity

2015

Description

Participant Reunion

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Study participants or study members

Results and Impact

Outreach to participants in the study, opportunity for participants to provide feedback on the study

Year(s) Of Engagement Activity

2016

Description

Participant newsletter

Form Of Engagement Activity

A magazine, newsletter or online publication

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Study participants or study members

Results and Impact

Outreach to participants in the study, opportunity for participants to provide feedback on the study

Year(s) Of Engagement Activity

2015

Description

Participant panel

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Study participants or study members

Results and Impact

outreach to participants in the study, opportunity for participants to provide feedback on the study, revised large public engagement event per participants' suggestions

Year(s) Of Engagement Activity

2015

Description

Participant workshops with members of the Aberdeen Children of 1950s cohort.

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Study participants or study members

Results and Impact

A series of three participant workshops (organised and managed by ADRC-S researchers) involving 27 members of the Aberdeen Children of the 1950s cohorts. The topics were: 1) Healthy Ageing; 2) Recruitment and Consent; and 3) Maximising participation.

Year(s) Of Engagement Activity

2018

Description

Participated in Third Sector Research Forum meeting (5.10.2017)

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Third sector organisations

Results and Impact

Participation in the Scottish Third Sector Research Forum meeting talking about using administrative data and collaborating with academics

Discussion about definitions and measurements of data literacy for practitioners working with data as part of the RSE Life in Data Research Network

Year(s) Of Engagement Activity

2017

Description

Patient Level Costing Data Meeting

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

National

Primary Audience

Professional Practitioners

Results and Impact

Develop understanding of PLICS methodology, and how the data might be incorporated into existing projects. Agreement to support an application to access PLICs data, and to feedback into its further development

The expert meeting was organised by Scottish Government in order to explore the potential for innovative use of data to support people at risk of falling into long-term unemployment due to ill health or disability

Year(s) Of Engagement Activity

2016

Description

Predictive Analytics Event

Form Of Engagement Activity

Participation in an activity, workshop or similar

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Policymakers/politicians

Results and Impact

Led to broad consideration of the use of administrative data to support lifetime costing and predictive analysis. A project is now looking at using the ADRC-S for a longitudinal analysis of supporting who are sick re-engage with the labour market.

Year(s) Of Engagement Activity

2015

Description

Predictive analytics for Government

Form Of Engagement Activity

A formal working group, expert panel or dialogue

Part Of Official Scheme?

No

Geographic Reach

Local

Primary Audience

Professional Practitioners

Results and Impact

Raising awareness among government staff for predictive analytics for administrative data and ethical issues associated with this.

Year(s) Of Engagement Activity

2015

Description

Presentation 'A description of the population in need of palliative care' at Holyrood Policy conference 07.02.2018

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Professional Practitioners

Results and Impact

Presented some findings from our research project and joined in wider discussion.

Year(s) Of Engagement Activity

2018

Description

Presentation about ADRC and Synthetic Data to Data Science Students from Edinburgh Napier University (22.11.2017)

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Postgraduate students

Results and Impact

Presentation about working with administrative data an synthetic data to ca. 20 data science students.

Discussion of the value and potential of using linked data in social science reseearch

Year(s) Of Engagement Activity

2016

Description

Presentation of Research Project 'Care at the end of life' at ESRC Social Science Festival (9.11.2017)

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

Regional

Primary Audience

Public/other audiences

Results and Impact

This was an evening event with ca. 25 attendees from the general public and academia during which four research projects were presented and the audience engaged in a lively discussion of the public benefit of our research.

Year(s) Of Engagement Activity

2017

Description

Presentation on 'Youth Transitions and desistance from crime' to Chilean policymakers and Ministers

Form Of Engagement Activity

A talk or presentation

Part Of Official Scheme?

No

Geographic Reach

International

Primary Audience

Policymakers/politicians

Results and Impact

Potential for development of a Global Challenges Research Fund application looking at youth justice transitions using administrative data from multiple latin American countries.