Welcome

Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and
others concerned about HIV/AIDS. Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the
conversation yourself by registering on the left side of this page.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive
and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a
username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own
physician.

All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators
of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please
provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are
true and correct to their knowledge.

Author
Topic: Joint pain (Read 2727 times)

I was hoping some of you here in the forum can help me, I am dealing with stiff and sore joint, especially in my feet. Specially in the morning when I get up, or after sitting down for 30 minutes.

In the beginning my doctor thought it was the TB med that I got, but now I have been out of that med since mid September. They took some bloodsamples, but they did not show that something should be wrong.

Now they think it could be a side effect from my HIV med, I get Truvada and Veramune.

So my question is, has anyone experienced similar side effects from this combo?

You had a low cd4 count upon diagnosis, so then you've had this possibly for decade.

Arthritis isn't uncommon in patients with long term infection, and it's from HIV itself --namely the constant inflammatory effects and the HIV medications. I'm surprised that your doctor didn't consider this first.

Joint Pain which led to Bone Pain was the first symptom I had with HIV. From my understanding this is not uncommon and there are many reasons for it. Including one in Latin that translates to something near General Bone Pain due to unknown sources.

In my case its a variety off conditions and side affects from at least 3 off the drugs.

The saving grace in all this was approx 15 years ago I was given a referral to a Pain control Doctor. Who through my exhaustive description off the Pains started me on a cocktail off drugs , including drugs not associated with pain control --in my case anti depressant used in a small does. There was a period off experimentation and to my delight If I struck to the cocktail I could be Pain free.

Now in the UK Pain controll Doctors are easily accessable to all and they have given back to me Pain Management way beyond the years before my referral . I have had at least one session with a visiting US Doctor , having a free Holiday in London on a study trip.

ED to add. Sorry assumed you where based in US , I would be surprised if you cannot access the Same in whatever Scandinavian country you are based in. In the UK the discipline grew out off 2 areas Anesthetics and the Hospice Movement.

Hope this helps in some way Michael

« Last Edit: November 02, 2013, 07:22:48 AM by Theyer »

Logged

"If we can find the money to kill people, we can find the money to help people ." Tony Benn

Miss Philicia, Arthritis was checked and the results came back negative.

And Michael, thank you for sharing your experience, I will talk to my doctor about this.

2cells, one of my doctors also think it could be Truvada.

Today I was admitted to the hospital, due to high fever, and they are afraid that the TB is coming back, but in best case I only have Pneumonia. So tomorrow morning my doctor will come and see me, and I will ask about my problem once again, and I will have your comments in mind, so thank you very much.

English is not my first language, and after I got sick it seems like it has gotten even worse, so I am sorry that my comments are a little short, it seems like my level of patience and writing in English is just as low as my cd4!!

Hope you feel better soon. For joint pain inflammation, I take curcumin (tumeric extract) plus it helps with inflammation all around the body. Good thing about it strong as steriods without the side effects but natural, doesn't have contradictions too.

Thursday I had a ct scan of my lungs, and they can see something in there, so on Friday they will take a biopsy to see what is hiding in there. They are working with two possibly scenarios, either it is the tb what is back, and then I need to go trough a 12 months period with tb meds, or it can be a fungus called Cryptococcosis, but I will not know for sure before the week after the biopsy....so maybe all my joint pain is because of all this that I'm going trough right now.

Did anyone here ever had this fungus in the lungs? It doesn't sound good, neither does the tb, because I had it before, and I was told that for HIV/aids patients if it returns after first treetment it will be more diffucalt, because it can be resistant to some if the meds that are used the first time.

Right now I feel like I have to start the nightmare I have been trough the past 8-9 months all over again...

I can well understand that you have the feeling off --here I go again----- I am sorry. However although there are similarities you are now more skilled at being a Patient, use that in the challenges to come . Whatever you learnt from the experiance use it .My very best wishes to you , you can get through this and eventually consign it to your own personal history. Keep posting and doing whatever esle that improves the quality off the day, hour, minute.Michael

Logged

"If we can find the money to kill people, we can find the money to help people ." Tony Benn