Busting out bad joints all over the place

My kidneys are spilling protein. For any of us with kidney disease, or having your kidneys impacted by another disease, you can understand what this means. It’s a sign that they’re not working all that well, and having protein run through them damages them even further. For a while, I was taking this blood pressure medicine that helped–it stops the protein, by opening up something-or-other (I do not know the specifics), from doing further damage and it was working for a while. The downside was that it plummeted my BP and so I was dizzy all the time and super woozy. So, they took me off of it.

But now I’m going back on the meds, and I’m fine with it–I know the routine, I know I don’t have high BP, and so, psychologically, I can cope with this medication. I can not feel angry at it or damn it all to hell and “forget” to take it because I’m so pissed off with the disease in all its forms.

What’s funny is that the doctor and I did all this diagnosing via email. He sent the test request to me via email (well, his secretary did; she’s awesome). I emailed them that I’d done the test and should I take the meds again, and he said “yes!”. I find it all quite amusing.

And even though taking a 24-hour urine test is mildly (read: extremely) annoying. All the back and forth around it isn’t/wasn’t. What a revelation, what a way to live your life — easily and actively knowing what to do and just actioning it. It’s shocking actually. Can you imagine if everything was that easy?

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about me

Girl with titanium hip will rock. Girl with titanium hip will write. Girl with titanium hip will read. Girl with titanium hip will battle crazy-ass disease called Wegener's Granulomatosis. Now stuff that in your spelling bee!