The adventures of two little dragons (Maisie and James) who keep defying the odds and changing the world, one day at a time. James suffered pProm at 12 weeks; the twins were micro-preemies born at 27 weeks weighing 1lb 11oz.

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Sunday, July 22, 2012

On the mend

Gosh, these little dragons have had a solid week of being extra nice to mommy and daddy!

It was a week ago when I had to have conversations with both regarding their recent incidents that led to several phone calls from the "principal's office" aka PSL NICU. I think they're just getting us prepared for the future, for when they're actually in school. We will definitely have our hands full.

Luckily things have been much quieter as of late. Maisie is officially a 2 pounder! She has been increasing her feeding and caloric intake to work on growing. James has started trophic feeds (3 ml every 4 hours) and is weighing in at 1lb 14 oz after losing all of his edema. James' lungs look much better and his collapsed lung has popped open (mostly- now just stay open all lungs!) The chest PT sessions are now only twice a day and they keep weaning on the ventilator settings.

Tonight we heard that James is on extubatable settings for the first time, meaning he could be taken off the ventilator and put on CPAP. If you can imagine I am slightly worried about jumping off this cliff too soon - I just want to make sure he is ready and has shown sustained improvement for several days before we switch over. I never thought I'd say this, but I am super thankful that tomorrow his main Dr K is back so she can oversee things. She did try to get us to pull the plug on a few occasions, but has since admitted that James has surprised them and come a long way. Dr K is very cautious with his ventilation and I am grateful for that. Don't be surprised if James is on the CPAP sooner than we think...