Cancer Survivors Network - Comments for "Symptoms"https://csn.cancer.org/node/259572
Comments for "Symptoms"en-csnMax,
I knew I loved you, buthttps://csn.cancer.org/comment/1382034#comment-1382034
<a id="comment-1382034"></a>
<p><em>In reply to <a href="https://csn.cancer.org/comment/1379777#comment-1379777">age ?</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Max,</p>
<p>I knew I loved you, but my love just got stronger as soon as I read that you thought I was so young<img src="/sites/all/libraries/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-wink.gif" alt="Wink" title="Wink" border="0" />.....lol...</p>
<p>Honestly the last year has put some rough lookin miles on me too, I will take the old age over tumors and lymph nodes the size of gumballs or bigger though. I wouldn't trade any of this journey thus far, would do it all over again. </p>
<p>BUT I WOULD'VE BEEN LOST WITHOUT ALL OF YOU!!!!</p>
<p>XXXOOO</p>
<p>Carie</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 21 Jun 2013 02:59:26 +0000girliefightercomment 1382034 at https://csn.cancer.orgHappy Birthday!!https://csn.cancer.org/comment/1382033#comment-1382033
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<p><em>In reply to <a href="https://csn.cancer.org/comment/1380159#comment-1380159">Hi Carie</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Liz,</p>
<p>Hi...I must say we have the best birthday ever in the world....hahahaha...I am also grateful to be able to chalk up another year, funny two years ago I promise you I would've never said that.</p>
<p>I am doing great, just had a treatment yesterday...hopefully only 2 more to go</p>
<p>How bout you? how are you doing?</p>
<p>XXXOOO</p>
<p>Carie</p>
<p> </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 21 Jun 2013 02:54:33 +0000girliefightercomment 1382033 at https://csn.cancer.orgHi Cariehttps://csn.cancer.org/comment/1380159#comment-1380159
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<p><em>In reply to <a href="https://csn.cancer.org/comment/1378300#comment-1378300">almost 37</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Carie,</p>
<p>Just wanted to say Hi, hope you're feeling ok with all the treatments. I'm also turning 37 this 29th of June, I'm actually very grateful with this B-day because it only means more time enjoying my kids and family :) Hugs sweetie and keep up with your good sense of humor!</p>
<p>Sincerely,</p>
<p>Liz</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 15 Jun 2013 05:25:38 +0000anliperez915comment 1380159 at https://csn.cancer.orgage ?https://csn.cancer.org/comment/1379777#comment-1379777
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<p><em>In reply to <a href="https://csn.cancer.org/comment/1378300#comment-1378300">almost 37</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Carie,</p>
<p>I would guess you to be 22, maybe 25 at the most.</p>
<p>I have the opposite effect on people: I just turned 57, but people estimate me to be 70 ! As I am told truckers say, I have "run some rough miles."</p>
<p>Stay young,</p>
<p>max</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 13 Jun 2013 23:57:35 +0000Max Former Hodgkins Stage 3comment 1379777 at https://csn.cancer.orgalmost 37https://csn.cancer.org/comment/1378300#comment-1378300
<a id="comment-1378300"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/259572">Symptoms</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Danielle,</p>
<p> I will be 37 in about 2 weeks, so you might as well say I am the same age...lol...no use holding on to 36 anymore.</p>
<p>I was diagnosed in March with stage 3 follicular lymphoma- symptoms were a swollen left node on my neck, very fatigued other than that i showed nothing, but was told that i have had this cancer for years&lt;---scary</p>
<p>I wish i had weightloss, but no luck..lol</p>
<p>I wish you the best of luck and will pray for you</p>
<p>XXXOOO</p>
<p>Carie</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 10 Jun 2013 12:47:23 +0000girliefightercomment 1378300 at https://csn.cancer.orgSymptomshttps://csn.cancer.org/comment/1377714#comment-1377714
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<p><em>In reply to <a href="https://csn.cancer.org/node/259572">Symptoms</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Danielle</p>
<p>Glad you have found this site, sorry it was under these circumstances, everyone here is very thoughtful and helpful with what ever you may need or question.</p>
<p>I would suggest that you receive second opinion, It souonds like your nodes are localized to the "upper hemisphere" which is a good sign you might only be in the beginning stages, but a Cancer specialist is the one that would make that diagnosis. I had no symptoms when my diagnosis came back positive 5 yrs ago. I had gone to my Primary Care Doctor because I was having problems getting rid of a sinus block after a long flight. She had noticed a single lump at my lt collar bone and immediately sent me to a surgeon for biopsy work. the needle biopsy was clear, and all my blood work was clear so they went to an antibiotic regiem, swelling changed slightly and a full biopsy was completed with positive results for HL. when I started chemo a month later the nodes in my neck had swollen and felt like a bunch of small grapes. Mostly on the left, but some were starting on the right. Other than that I was symptom free, my Oncologist said I was in great shape and startedt treatment a month after.</p>
<p>I have seen that some of the Docs willl go for a wait and see approach, NOT GOOD! Get a second or third opion if able,this needs to be taken care of as fast as possible.</p>
<p>Dave</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 08 Jun 2013 09:17:47 +0000GalacDadcomment 1377714 at https://csn.cancer.orgAfter splenectomy???https://csn.cancer.org/comment/1377703#comment-1377703
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<p><em>In reply to <a href="https://csn.cancer.org/comment/1377680#comment-1377680">I had swollen lymphnodes on</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi every1,</p>
<p> </p>
<p>Wenever i cm over here, i get strength frm reading ur experiences.. a big thanx to evry1 whos out here, sharing n caring fr each othr.. we hv bcm a big family <img src="/sites/all/libraries/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-smile.gif" alt="Smile" title="Smile" border="0" /></p>
<p>My mom underwent splenectomy n jan 13.. after dat she ws pretty normal.. most of her symptoms lyk tiredness, weight loss went away. her next follow up is n next week.</p>
<p>Bt nw shes strtd feelng tired, sleepy, weak all over agn. Shes hvng Marginal Zone Lymphoma Stage 4.</p>
<p>Can any1 guide m on dis?? Is it dat her lymphoma s hauntng back??</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 08 Jun 2013 06:15:21 +0000jo66comment 1377703 at https://csn.cancer.orgI had swollen lymphnodes onhttps://csn.cancer.org/comment/1377680#comment-1377680
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<p><em>In reply to <a href="https://csn.cancer.org/node/259572">Symptoms</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I had swollen lymphnodes on my left side around my collarbone. When I noticed it at first it was the size of a quarter after 5 weeks it was about the size of a lemon and thats when I went to the doctor. I was diagnosed with stage 2 hodgkins lymphoma and my only symptom was alcohol. I would have 3 drinks of 1 beer and would have the worst headache. Hope this helps ya stay strong</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 08 Jun 2013 03:36:46 +0000micah00comment 1377680 at https://csn.cancer.orgI had swollen lymphnodes onhttps://csn.cancer.org/comment/1377679#comment-1377679
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<p><em>In reply to <a href="https://csn.cancer.org/node/259572">Symptoms</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I had swollen lymphnodes on my left side around my collarbone. When I noticed it at first it was the size of a quarter after 5 weeks it was about the size of a lemon and thats when I went to the doctor. I was diagnosed with stage 2 hodgkins lymphoma and my only symptom was alcohol. I would have 3 drinks of 1 beer and would have the worst headache. Hope this helps ya stay strong</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 08 Jun 2013 03:36:44 +0000micah00comment 1377679 at https://csn.cancer.orgHellohttps://csn.cancer.org/comment/1375778#comment-1375778
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<p><em>In reply to <a href="https://csn.cancer.org/node/259572">Symptoms</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Danielle, </p>
<p>So sorry to hear about what you're going through!!! I'm a little older than you (41) and have been going through something similar. I have multiple enlarged lymph nodes that showed hypermetabolic activity on a PET scan in February 2013. They biopsied one from my right underarm in March &amp; it came back clear of lymphoma. Blood work was clear of any infection or virus (and they ran them ALL) My oncologist put me on the watch &amp; wait plan which is very frustrating, I just had my follow up CT 2 weeks ago and it showed all of the original lymph nodes are stable/not growing. It also showed a few new things too but I'm not sure what any of it means yet.</p>
<p>I've developed other symptoms as the months have progressed, night sweats, extreme fatigue, no weight loss though. My onc was going to have me repeat my CT scan in September, but after I complained about the fatigue wearing me down my onc decided to run a ton of blood tests that I'll get the results for this week. Nobody <strong><em>wants</em></strong> to be sick, but I'm at the point where I'm praying for them to find <em><strong>something</strong></em> so I can move on towards getting my energy back. Limbo stinks enough on its own, being wiped out 24/7 is the worst.</p>
<p>I'm glad you found your way to this board, everyone on here is amazingly supportive &amp; caring. One of the first things someone shared with me on here was get a 2nd opinion. It took me 3 months to actually go through with it, but that's what I'm pursuing in the next few weeks. I suggest the same to you. I only saw an oncologist because I faxed my PET scan results to one &amp; he asked to see me within 2 hours of receiving it. #1 if I hadn't done that the surgeon was only going to do a needle biopsy. The onc said they wouldn't get a big enough sample &amp; I'd wind up needing an excisional biopsy anyway so why go through both? The needle biospy was cancelled &amp; we did an excisional. #2 if my PCP saw that node was "clear" would he have ever sent me to an oncologist? Not sure about that, but life is too short to gamble with your health. Get your answers, as most say on this board be your own advocate. Good luck!!</p>
<p>Sherry</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/259572%23comment-form">Log in</a> or <a href="/user/register?destination=node/259572%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 02 Jun 2013 18:46:32 +0000rescue911chickcomment 1375778 at https://csn.cancer.org