This blog is for those who suffer from Alzheimer's Disease,
FTD and forms of dementia, caregivers, friends and medical professionals that want to share their feelings, thoughts, encouragement, vent and open how they cope with this disease. I was diagnosed in 2004 with the early stages, and quite frankly it scared the beegeebees out of me. 2007 PET SCAN confirmed all.
Joe

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Wednesday, February 23, 2011

First time to post...

First, THANK YOU Joe for inviting me to post on your page! I've been a big fan of yours since the HBO series came out...as soon as I viewed it, I knew I had to look you up on the big wide web.

A bit about me: I've been a nurse for 17+ years and have a very special place in my heart for the geriatric community. I've been an instructor for 8 years at a Technical school. I teach adult students in different allied health fields. After beating the floor for several years, I felt that it was my calling to pass on what knowledge I have to others. I believe that every person living in a nursing home or receiving home health care deserves to be treated with dignity and respect. As far as I am concerned, there just is not enough of that these days. It takes a very special, and patient person to care for elders, regardless of what disease process they are going through.

In my Certified Nurse Aide class, I have my students do a research paper on Elder Abuse and another on Alzheimer's Disease. Part of my teachings over Alzheimer's involves the HBO documentary - The Alzheimer's Project. And you, as well as the others that are and were inflicted with this monsterous disease. In case you haven't been told yet, thank you for allowing your story to be told.

Today after I took the students on the Alzheimer's Brain Tour, I showed them the documentary. I am always amazed at comments the students make. "I didn't know that this disease was that bad" or "What a horrible disease to get". My answer every month is always the same: Yes it is, on both accounts. There is no cure for Alzheimer's as of today, but my hopes and dreams is that there will be... soon.

A couple of weekends ago, I was on a flight to Houston, reading your book when the lady sitting next to me commented on the book cover. She said that it was an unusual picture, but it had a catchy title. I explained to her who you were and during the conversation, she informed me that she has a mother who has the dreaded disease. I gave her your website and I hope that she has had a chance to log on and look you up. The experiences and emotions that you are dealing with IS helping others out here Joe. How can it not? No one knows what a person with Alzheimer's is going thru or feeling unless someone tells us. You are doing that for all of us. Thank you for that.

I will post more in the coming days and as always, I look forward to reading your blog. Thank you again for inviting me to post.

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We welcome you to our world where Alheimer's is taking its' toll. But we work together, the entire family, we love and share while the time is still there. Somedays are difficult and scary but the road is filled with Love & Kindness and God's help, who could ask for more. Hope you visit us often and you can email: jolynn1@cox.net, with thoughts, comments, questions and we will offer any help we can.

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This blog does not accept any payment for the listing of links to other sites nor do we accept or endorse any products, including those advertised on linked sites. This blog is simply my journey with the disease of Alzheimer's and Frontal Temporal Lobe Dementia. We pay tribute in memory to those that have past from this deadly disease.