Databases

This week a judge ordered that the approximately 10 million records of California students held by the California Department of Education will not be turned entirely over to a group of community nonprofits in the Morgan Hill case. Instead, the judge ordered that several smaller databases may be turned over to the nonprofits, but that the largest and

Update for March 3, 2016: This week a judge has ordered that the approximately 10 million records of California students held by the California Department of Education will not be turned entirely over to a group of community nonprofits in the Morgan Hill case. Instead, the judge ordered that several smaller databases will be turned over

Today The Guardian published an op-ed I wrote about employer-sponsored wellness programs. You can find that op-ed here. I have researched and written about HIPAA, health plans, wellness, predictive analytics, and big data for years now. A lot of my work coalesced together when Robert Gellman and I researched and wrote the Scoring of America

I spoke on a panel recently on the topic of all things privacy and biometrics. The Biometrics Institute hosted the discussion at the Australian Embassy in Washington, DC. The panel discussion was subject to Chatham House rules, and, in order to foster open dialogue, the audience did not include any members of the press. The

Many people have told us that they think opting out is confusing. We agree. Opting out can range from the not-too-difficult (the FTC’s Do Not Call list is a fairly simple opt out) to the challenging (the National Advertising Initiative opt out can be tricky). Our hope is that this list will clarify which opt out does what, and how to go about opting out.

This new World Privacy Forum report reviews privacy law applicable to the Precision Medicine Initiative (PMI), and the large medical information and biospecimen database at its center. The HIPAA health privacy rule and its protections for individuals will not apply to PMI research activities. The key privacy concerns raised by the PMI are the lack of applicable law to govern its collection and use of individuals’ health data, the potential waiver of the patient-physician legal privilege that can shield data from disclosure through litigation, and the possibility of law enforcement access to patient records held in the PMI.

To score is human. Ranking individuals by grades and other performance numbers is as old as human society. Consumer scores — numbers given to individuals to describe or predict their characteristics, habits, or predilections — are a modern day numeric shorthand that ranks, separates, sifts, and otherwise categorizes individuals and also predicts their potential future actions. This new report by Pam Dixon and Robert Gellman explores this issue of predictive scores and privacy.