Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

first ivig tonight

Hi Papersong,
So sorry! Are you inpatient for these treatments? Take something to help you sleep. If you are home, I continues to take benedryl and tylenol to ward off any impending headache (it also helps you sleep). If you are inpatient, request something for sleep. My infusion rate was very slow--7-8 hours. Some need an even slower rate. Drink, drink, drink while you are infusing. I also did better if I snacked throughout the session (nuts, berries, fruit).
Good luck and let us know how the next one goes,
~sherry

I qualified for home infusions, so glad.
Also glad there was no Benedryl with this IVIG brand because I don't think I would have woken up. I started getting that sleepy &quot;I'll just lay down in the snow for a moment&quot; feeling and my breathing went shallow.
I had had to discontinue Mestinon because it stings my kidneys, but I went ahead and took it then! I sat up per Curt's advice and tried to make myself breath deeply but it took a while before I could keep my eyes open. Feel much better today, no headache or anything- trying to drink a lot before tomorrow's infusion

Lots and Lots of water..before durring &amp; after..Also If they will.. I have them hydrate me before my treatment (ivig) and after for at least 1/2 hour. That way i have plenty of hydration...Don't be afraid to take longer with the infusion it beats a bad headache.. Also if you don't like Benadryl try Zyrtec works great for me...
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