Hey i would like to say iam sooo sorry for anyone who has lost a child to this unique disease i also had a baby boy who had Hirschsprung's Disease he went threw a couple of things before they finally decided to suggest surgery. At 2 and a half weeks old they did the surgery...

before they found he had Hirschsprungs Disease. The first was at birth and the second was probably around 4-5 months old. We thought we were going to lose him. After his second malrotation he got a terrible infection (c-dif) which required an "exploratory surgery" and it wasn't...

Are little Aubrey'Once was born on Dec29.08 and his 2nd day born he was in the nursery and I remember the nurses coming to tell me out my sleep they are rushing Aubrey to the NICU, and from that day on we have been in and out of hospitals and different Doctors since and GI doctor...

Hello, my name is Jerilee and I am 24 years of age. I have a son, Kingsley, who will be 2 this coming December. He was delivered full term at a birthing center in Lakeland, Fl. He passed his meconium just as being birthed-it was a tough labor and luckily there were no problems...

One of my dearest friends lost their baby daughter to Hirschsprung's Disease. We are trying to find any cases of complete infection of the intestinal tract (long segment, I believe it's called. I may be mistaken). There is a less than 1% chance that a child born with Hirschsprung...

My son Ryan was born July 1,2003 at 35 weeks. A tad early but weighing in at 5 pounds. Two days later they told me my son may die. He either had cf or hirschsprung disease or both. He ended up having hirschsprung. He first surgery was at 7 days old. He stayed in the nicu for over...

My son was diagnosed with hd when he was about a month old it progressed fast and he had to have surgery at 3 months old to correct the problem he had a a very minor case and it was very a successful surgery we have not had any problems since then and it seems like we dont even...

My first Grandson was born on July 2, 2011. The day after he was born he was airlifted out to another hospital for tests. They took him down to a biopsy and came up with a colostomy and was diagnosed about a week later with HD. We then were airlifted out to another hospital...

I'm 17 and I am in highschool. I've had this disease since birth, and my parents have always treated me as a ''normal'' child, which has enormously helped me to act and think like a regular child. Of course I have issues holding for too long, but I get used to it, I can...

I originally started this group and posted Austin's story. You can read that here. EP Link
Austin is now 5 years old and will be starting Kindergarten this week. I thought I might update on how things are going so that other parents helping their children live with this disease...

My son, Austin was born on January 13, 2008. He came out right on his due date absolutely beautiful, and perfect. He was slow to feed, but the nurse's assured me that he just needed to learn how to suck, and probably still had fluid in his belly. Having already had a baby (Robbie...

He had his pull through at 3 months old and did great for 2 years with the exception of a few infections. For the past 8 months he has had issues with not being able to pass stool or gas on his own. We have tried a crazy amount of medication to kick start his colon again but...

my niece was diagnosed with hirchsprung disease and has had a procedure already and my family is totally dumb founded and have no clue what to expect and what type of questions we need to ask can someone please tell me if this is something that is going to effect her whole life...

My little boy was born on the 15 July full term, but didn't feed or pass stool, thankfully we were airlifted to the mainland where HD was diagnosed, he had a pull through at the end of September which seems to have been sucessfull. Bowels have been working very regularly but...

Nicholas was born December 18, 2006, six days early via a planned c-section. He seemed perfect except that he never passed his meconium, and didn't seem to want to eat. That night the nurses took him to the nursery so I could sleep, and overnight it was determined he needed to...

.i have a son with HD and GDD, he is 3yrs old now, his been through a lot with 6x surgery 6x episodes of enterocolitis, his last hospitalization was january 2014 for enterocolitis but after that till now his doing good, after all this irrigation,enemas, dilatation he is going for...

my son James was diagnosed at the age of three and a half years. He had the pull through, then we had the colostomy due to intestinal rush. Colostomy got reversed two and a half years later. So we continued on again and eventually James got a distal ace (due to more incontinence...

at 17 days old. He had his first surgery at 21 days old and gotten a colostomy bag. He had a reversal at four months, didn't work so well, had a pull through again at 9 months. He had the colostomy bag til he was a little over 2 yrs when they tried a reversal again, with a 50...

My son is 6 months old and we are impatiently waiting for the biospy results for a possible Hirshsprung disease. I really need for someone to give me a little hope with a positive story about chhildren diagnosed with HD. Since I have stopped breastfeeding (at 3 months), my son...