Friday, November 6, 2009

Time goes by so fast. I can not believe Bryleigh will be 1 in 2 months. My son Tyler turns 5 in 2 weeks. So this time around our house is very busy! We have birthdays to plan, and holidays to prepare for. But with all the plans I absolutely love this time of year. I cannot wait to decorate for Christmas, I think that is when my house is the prettiest :-) Bryleigh is continuing to do great. She is crawling around the house, getting into sitting position on her own, and talking alot. She is very fascinated with the dog food and laptop. She will be playing in the floor with her toys and as soon as someone sits down with the lap top she is right there trying to get some play time in on the keyboards. lol. She goes after dog food everytime she sees it, and I could not figure out the fascination. So i let her make her way to it the other day and she did not eat it, just wanted to feel it and throw them around. She definitely lets us know if she does not like something. She will give us her pouty lip or throw herself backwards. About two weeks ago Michael was dropping Bryleigh off at the sitter and he pulled her arms to get her out of her car seat (something I said NOT to do ALL the time)and her elbow pulled out of place. She was in so much pain and it was so sad. I left work and met them at the hospital. They moved her arm around and did something that put it back. That day she was very fussy and would not use that arm at all. I started to worry because the doctors said she should be back to using it normally within a few hours. But by the next morning she was using it and pushing herself up with it. That was such a bad experience. So needless to say daddy does not pick her up that way anymore. Bryleigh had an ophthalmology appointment about 3 weeks ago and they said her left eye does not focus as good as her right eye. We have started patching her eye for an hour a day each day. She does not like when i put it on her so she shakes her head side to side so I cannot get it on. Once I succeed she is fine with it. We have to do this for 4 months. Next week she has an endocrinology appointment. I am not sure what exactly they are going to do, her doctors have just suggested she go to one. The following week she has an appointment at Scottish Rite. Her developmental doctor referred her to be seen. I have heard so many great things about the hospital. Bryleigh is still in ECI and I think it is helping her so much. Her therapist sees another little boy at Bryleighs sitter too. Every time she comes to work with him she will do some stuff with Bryleigh even if she doesn't have an appointment. Below are some recent pictures of Bryleigh from my phone. Sorry the quality may not be great, I have a ton on my camera that are probably more clear but I am at work so I can not get to them.

About Me

Bryleigh is a beautiful little princess who was diagnosed with congenital hydrocephalus, an encephalocele, absent septum pellucidum, and thinned corpus callosum. She has had two surgeries and is doing awesome! We are so thankful and proud of her! We welcome everyone to read about her journey!