Our Charity in Honor of Kate

Our Baby Kate

Katherine Anne was born on June 26, 2006. Shortly after her birth...she was diagnosed with Tetralogy of Fallot with Pulmonary Atresia associated with the 22q chromosomal deletion. Kate was a trooper...endured 4 open heart surgeries, 5 heart catherizations and spent over 150 days in the hospital. On January 15, 2008, her heart gave out and she passed into her Heavenly Father's Arms. During her 568 days here on Earth...she was always smiling. We miss her immensely...but rejoice in her new pain-free Eternal Home.

Kate's Links

Sunday, August 12, 2007

Kate ate again...took the whole bottle and wanted more...AND kept it down. Things are looking good that she is able to tolerate the oral feedings into her tummy. She is lovin' it and 3 ounces is not enough for her. They will slowly begin to add more once they know she is tolerating it well...then we can get those two tubes out of her nose.

They were able to pull one of her venous lines....just one more line going directly into her body. We're getting there. She still needs that for drawing blood and getting her IV antibiotics. So far...nothing nasty growing in those cultures. Prayers are being answered.

So...it looks as I've been re-hired as mommy! My every 3 hour feeding schedule is back on! I am so grateful and will gladly get up any hour of the day to feed my little girl! This sittin' on the couch just watching her sleep was getting really really old!

The doctor's biggest concern right now is just making sure she doesn't get back into that funky heart rhythm and if so...that it doesn't affect her blood pressure and breathing again. But if she stays out of that and continues to eat so well...we'll be on our way!

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comments:

Anonymous
said...

What wonderful news after such an upsetting 36 hrs. Please check your e-mail account for a picture that I sent from Covenant today, since I couldn't figure out how to do an attachment here. It shows Jesus' large hand holding a small girl in it and references Matthew 11:28 "Come to me, all you who are weary and burdened, and I will give you rest." Our prayer for you is that you and Kate will find that perfect and comforting rest really soon.Steve & Marlene

I'm so happy that she's eating and tolerating it! I will continue to pray for negative cultures, tolerating feedings and getting her nose tubes out soon! I'm very happy that you feel like a "mommy" again!

Welcome to our blog...and thanks for sharing in our journey through this amazing ride called life! We are blessed...in many ways by our loving Savior. It is our hope and prayer...that this blog might bring you a little laughter...a little encouragement...a little hope...or a little of whatever you need to help you out today!

Our boys

Seth is our totally amazing 11 year old! He brings us nothing but complete joy. He loves soccer and basketball, school (especially reading and math), playing with friends and collecting any type of sports card. He excels in school in all areas and usually is a great big brother. He is a great kid with a super heart.

Grant is our "on the go" 5 year old! Grant loves to explore...and wants to be outside all the time. If he can't be outside, he loves to play Wii, board games and with his Legos. He wants more than anything to be big like Seth. He can make me laugh on almost a daily basis...and his hugs beat no other.