Help us by volunteering your time

You can help us to raise the public awareness of the terrible fate of children suffering from rare diseases, and, what are for the meantime at least, incurable diseases, be it in schools, universities, businesses, doctors’ surgeries or within families.

Help us by distributing informational material, organising an event or by establishing your own projects for children suffering from rare diseases. Please feel free to contact us, we would love to support you!