Established in 1998, our group began gathering information about
the Marcus Gunn Syndrome (Marcus Gunn Phenomenon) commonly referred to as
a jaw-wink. Between 1998 and 2002, we documented 212 cases
through questionnaires. We now have re-grouped to help determine if
there is a solution to the manifestation of the disorder. We
have kept the Yahoo group active since that time. It is still active
and you are welcome to join.

Allison Gahrmann founded this group and currently is reviving the
research. She has a Marcus Gunn Syndrome with
ptosis. When we began our studies, Allison was the oldest of
our participants, born in 1962. We only have a few older at this
time. Most of our participants are children's parents. We
suspect this comes from the active participation parents take in their
children's lives. We encourage all who are affected by this rare
disorder to contact us. The more information we gather, the better
chances we have of finding a solution.

An important discovery to note has not been the cause or solution to
this disorder, but the social implications involved. We are focused
on helping parents understand what a child undergoes with a rather
uncontrollable facial problem. We feel that teaching children to
express themselves about their jaw-wink is important. Helping
others to understand it is a part of them is one way to overcome some
of the obstacles they may face with their peers.

Disclaimer: The Marcus Gunn Foundation is not a group of doctors
and should only be considered a source of support, potential direction in
which to proceed and information from which statistics have been
gathered.

NOTE: The Marcus Gunn Pupil is a different disorder. If you
have reached this page seeking information about the "pupil" disorder, we
will do our best to direct you to a better source of
information.