Sunday, July 5, 2009

Fundraiser... I know I'm doing these updates out of order!

Okay... so I know I have more to say about everything. :) We had an AWESOME fundraiser at our church. It started out by my friend Shelli and I talking about doing a chili supper or something to raise some funds for medical bills and medical travel expenses for both girls. It went from that to the ladies at the church taking off and running with it.

Wanna know how you thaw 20 bags of frozen chicken? Here's a pic of how to do it! Don't mind the funny face! I was trying to open a bottle of italian dressing.

Yes, we thawed 20 bags of chicken in our guest bathroom bathtub. (Note: for anyone that attended the event... I did NOT drop any chicken in the bathtub and I'm a NEAT freak!) No worries about germs! :)

In all it was an amazing event and this helped us raise lots of money for the girls! I told Britt our next fundraiser could be a car wash. Maybe next Spring..... He wasn't on board for that, but I'm willing to do whatever it will take to get my girls the BEST care out there! I don't care if it kills me in the process.

Again.. big hugs to everyone that helped and donated anything to help with the fundraiser.

Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!