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NF2 Living, Win the Challenge and Who Am I?, by Jane E. Wilson

Jane has written several books of poetry, and in 2005 wrote an autobiography, Who Am I? Jane tells about being diagnosed with neurofibromatosis type 2 (NF2) and how she matter-of-factly faced this and other challenges in her life. She writes with wit and never self-pity. Throughout the book, Jane offers scriptures that have inspired her, poetry, and advice on living with NF2.

NF2 Living, Win the Challenge (2006) is almost a how-to book—how to live, and improve your quality of life, with NF2. In the preface, Jane writes, “This book is to shed light on your life to change chores into challenges and win…Please never give up because you never know what awaits you around the next bend in life’s road.” Many Oley readers will be drawn to the chapter “Fodder for the Feeding Tube,” where Jane describes how she made a successful transition from “7 cans a day of…liquid medical foods” to a blended diet. While Jane’s diet is specific to her medical condition, she offers useful, concrete tips on blended diets in general. The books ($10 and $12 respectively) are available directly from the author at 2501 Mt. Pleasant St., Apt. 16, Burlington, IA 52601, or www.poetgirl52@q.com.

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

Updated in 2015 with a generous grant from Shire, Inc.

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.