Learning Disabilities and/or Autism

People with Learning Disabilities and/or Autism

NHS England (NHSE) and West Norfolk CCG

NHS England (NHSE) leads the National Health Service (NHS) in England and sets the priorities and direction of the NHS. It shares out the funding of the NHS and holds organisations to account in spending this money effectively and efficiently.

NHSE’s work involves the commissioning of health care services in England and supporting local health services led by Clinical Commissioning Groups (CCGs) (to include West Norfolk CCG) who plan and pay for local services such as hospitals and ambulance services.

More information about the NHSE and its role and work can be found on its website www.england.nhs.uk.

The Transforming Care programme

The Transforming Care programme is about improving health and care services so that more people with learning disabilities, autism or both can live in the community, with the right support and close to home.

Assuring Transformation data (AT data)

NHSE collects information about people with learning disabilities, autism or both who are getting care in hospitals for their mental health or because they have had behaviour that can be challenging. It gives commissioners (such as West Norfolk CCG) broad oversight of their care.

This information is called ‘Assuring Transformation data’ (‘AT data’) and is collected every month from the CCGs to include West Norfolk CCG. It does not contain any personal information like names or birthdays. It is collected to ensure that people with learning disabilities and/or autism are not in hospital if they would be better looked after in the community.

Right to object

An individual has the right to object to their information being used in the AT data collection and their objections considered. Patients in hospital who do not want details about their care to be included in the AT data need to tell West Norfolk CCG as their commissioner. West Norfolk CCG has a process for managing the objections received. (See Further Information section below).

Further information

NHSE’s easy read leaflet ‘What is Assuring Transformation?’ gives more information including what to do and who to contact if an individual does not wish details about them to be included in the AT data collection – the leaflet can be viewed here.

NHSE’s guidance for commissioners (to include West Norfolk CCG) about AT data and managing individual objections gives more information to include:

Why the AT data is collected

What the AT data covers

The legal framework to include requirements

The process for managing objections

The AT data and managing individual objections guidance can be viewed here.

Fair Processing Notice

For more information about how patient information is used in the NHS follow this link on our website.

Learning Disabilities Mortality Review (LeDer) Programme

For information about the Learning Disabilities Mortality Review (LeDer) Programme follow this link on our website.