Keep fighting every hour, every day! - Jay Heaps, New England Revs

Max's Story

"Two roads diverged in a wood, and I-I took the one less traveled by, And that has made all the difference" - Robert Frost

Max was born on October 4, 2010 with L Transposition of the Greater Arteries (also known as Congenitally Corrected Transposition of the Greater Arteries) and Complete Heart Block.

Description

In August of 2011, Max had his first open heart surgery for PA Banding and Bi-Ventricular pacing with Dr. Pedro del Nido at BCH.

After this surgery, we had several follow up appts, at which time the doctors noted tricuspid valve regurgitation, aortic valve regurgitation and moderate right ventricle dysfunction. In January 2013, it became clear that Max's right ventricle was not going to be able to serve as the systemic ventricle for much longer.