Well, it’s been a little while, hasn’t it? A big part of the reason I’ve been so silent recently has been due to that bastard ME doing its usual bastardy things, just more of them and more frequently. Sigh. I won’t recount each and every thing, since not only would that be boring for you, but it would also take far too many spoons for me to type up. So let’s just leave it at I was being held hostage by ME.

Ok, I will actually tell you about one thing it’s been doing because it’s new and super annoying. Keep in mind that I’ve lived through many winters by now, and this has never happened before. Usually, summer in Los Angeles just about kills me each year, but the winter provides a much-needed break from the oppressive heat. However, this winter I’ve been experiencing something very strange and it’s difficult to even put it into words. It’s like my body is having a lot of trouble adjusting to temperature changes. Say I go to sleep at night (as I usually do) and it gets kinda cold overnight. I actually like things getting cold; it means it’s not hot! But then when I wake up in the morning, the air is cold, the house is cold, so I bundle up and turn the heat on. But then as I’m bundled up, I start to sweat, as if I’ve overdone it and now I’m too hot, only I still feel cold. Then I’ll start sweating more, which does its job and starts cooling me off, so I feel even colder, so I pile on more clothes and heat, then I sweat more, and I get colder… and the cycle continues until I’m a tearful puddle of both ice and fire, shivering in front of the radiator, stripped down of as many clothes as I can bear, waiting painfully for my body to just figure it out. Which might take an hour or two for it to do, and by then I’ve used up more than all my spoons for the day and it’s barely breakfast time.

It seems to be more of an issue when I’m stressed (thank you, Geoff, for pointing this out!) so staying calm helps, but you all know how easy it is to simply stay completely peaceful every single second of the day. If we don’t let it get SO cold at night, that also seems to help, and if I force myself to warm up and cool down more slowly, those things help too. But it’s just one more obnoxious way the ME toys with me and makes life more difficult. ME, you’re a sadistic bitch.

Some time soon I will also tell you about FINALLY having another round of nerve-blocking injections after months and months of fighting with my insurance company over them and the recent developments in Calantha’s growth removals, but I’m not ready to get into any of that right now. So, on with the show!

This is the time of the year when I usually remind you guys of all the things I sell which would make excellent holiday gifts for whomever you have on your list, so I’ll keep to that tradition!

Of course, there are my fine art prints, available through my Etsy shop. It’s not at all cost- or time-efficient to list every single image I have available in every size, so if there’s something you’d like and you don’t see it listed, just email me!

Red Bubble is also my printer for my collectable yearly calendars! You can get your 2017 calendar right here 🙂 These are some of my favorite things to produce, as well as some of my most popular items. They’re practical and also give you an inexpensive way to have 12 beautiful images to display on your wall throughout the year; a great value!

I’d also like to mention that I’m really happy with the quality of what Red Bubble makes. I’ve bought numerous items from them over the years, for myself and others, and I’m always very pleased with how they look and function!

Then there’s my self-discovery-through-photograhy-online-course Introspective: A Photographic Quest. It’s still almost 50% off its normal price because I haven’t had time to figure out another hosting option for it yet (Udemy recently decided to cap all its classes at a maximum of $40 per class, regardless of the original cost). Take advantage of that savings while you can! This isn’t a class so much about camera functions, f-stops, shutter speeds, etc (although I provide links which explain those things to those who want to learn). This is truly about exploring who you are as a person and portraying that through art.

The eight-week course gives you weekly prompts of things to photograph; it’s more like visual journaling than simply taking photos. You can share the images if you want or keep them all to yourself, the choice is yours! I built the class based on my experience with the incredible healing power of art and self portraits when I first picked up a camera; this class is completely unique and would make a wonderful gift for anyone who enjoys art and/or self reflection!

And something new this year; I’ve also selling high-quality skin serum through my other Etsy shop! This is a skin serum I developed while searching for the perfect serum for my own face. I couldn’t find what I wanted anywhere, so I took matters into my own hands and made my own blend of oils! Once I saw the wonderful results it gave me, I started giving it to friends for them to test and they also reported excellent results. After many glowing reviews from friends and friends-of-friends, I decided to start offering it to everyone!

My serum is blended with high-quality, natural ingredients (no fragrances or fillers). It’s 100 % vegan and cruelty-free and it is safe for all types of skin. Each bottle is hand-made in small batches and infused with eternally loving unicorn energies!

Right now I’m offering two different versions, one for your face and one for your hands and nails, but the base of both blends are the same. They contain rosehip seed oil (high in fatty acids, vitamins A and C, it helps to regenerate skin and stimulates cellular membrane and tissue regeneration), argan oil (an extremely healing oil overflowing with vitamins A and E and anti-oxidants, along with omega-6 fatty acids and linolec acid which helps ease inflammation while deeply moisturizing the skin) and vegan squalene oil (one of the most effective and powerful moisturizing ingredients currently known! Because it mimics the body’s own natural moisturizers, it can penetrate the skin well and is absorbed quickly.) And you also have the option of adding vitamin C serum to your oil blend (reduces signs of aging and is especially wonderful for eliminating sun spots or other skin discolorations. This vitamin C serum has an infusion of enriched organic aloe and jojoba oils to provide additional healing and hydration for your skin. These unleash powerful antioxidants while preventing the formation of free radicals which contribute to signs of aging.)

Here we are at May 12th again. Another Invisible Illness Day come to bring awareness to all the illnesses and diseases which are impolite enough to leave their sufferers still appearing to be well. Of course, anyone more than casually acquainted with someone who has fibromyalgia, myalgic encephalomyelitis, chronic fatigue syndrome, complex regional pain disorder, multiple sclerosis, rheumatoid arthritis, Crohn’s disease, Lyme, lupus and many, many more illnesses can attest to how debilitating they can be. The facade of health they leave intact feels like salt in the wound; a confusion for those untouched by their cruel hand, a silent undermining force with us at every doctor’s appointment, a declaration that we are lying or greatly exaggerating our illness.

What else can I say about ME? About all the other forgotten, ignored diseases swept under the rug of modern medicine? Illnesses which embarrass our doctors with their constant reminder that we remain unhealed. Sicknesses with confusing, confounding symptoms which can morph and change like the whim of a butterfly’s flight. Maddening maladies which suck away our vitality, our joys, our passions, our lives as completely as any vampire.

I am determined to get better. I am committing myself to be well, even if I have it about through sheer mental will. I will not give in to ME’s gloomy, hopeless future forecast of progressively worsening every year. I am not accepting a future of the living death that is ME.

I don’t know exactly how I will get better, but I am going to. As a sign of my determination, I changed my blog’s tagline for the first time since I started this blog years ago. “Art, photography, life and why I always feel like shit,” felt perfectly appropriate at the time. “Art, photography, life and how those are really all the same thing,” is much more appropriate now. My identity is not Sarah-who-has-ME. I am just Sarah.

As I wrote about in my last entry, my life has been pleasantly consumed recently by my spirituality. I have strongly felt how focusing on fighting ME has been feeding it. So now, I will ignore it as much as possible. I do not mean that I will forget my body’s current limits, or not honor them. Listening to my body and what it’s able to do is vital for my current and future wellbeing. But I’ve realized that I can live within the confines of my case of ME while still not letting it reign in every area of my life, and that feel incredibly freeing. This is the path I will pursue.

This also does not mean that I will not advocate for ME sufferers. I still feel very strongly that the only way we will bring about change is by demanding it. And we can only demand it if we know that it exists in the first place. But I can also advocate without allowing ME to rule every part of my soul.

As May 12th approached, I wanted to create a new image for my Enchanted Sleep series, which is all about living with ME. I asked Katie Johnson, frequent model and collaborator as well as dear friend, if she would help me bring some concepts to life and she gladly agreed to help. Through a variety of factors, I wasn’t able to shoot these images until very recently, which meant I had a very short window to edit one up and release it for Invisible Illness Day, but I got it done! Ideally, I would be releasing the whole short series we shot, but I am content with having just one to show you and help illustrate life with ME. With that, please let me present my latest image to you, Living With The Tombstones.

I probably don’t have to explain the symbolism behind shooting this image in a graveyard. ME (and many other invisible illnesses) truly can be a living, nightmarish death. Even if you’re not one of the unfortunate souls cursed with severe ME, where any touch, light or sound cannot be tolerated, you die every day to the dreams and hopes you had when you were healthy. You might discover new passions to pursue within ME’s confines, but do you ever truly forget what’s been taken from you? If you do, I am not there yet.

I took the name “invisible illness” and interpreted it quite literally, editing out any part of Katie’s body which showed outside her long, princess-like dress. And the mirrored mask felt like the perfect touch. When people look at us, they rarely see us; they see their projections of who we are. Often what they see says far more about them than us. Some will look at me and, because I can occasionally manage to put on clothes, have Geoff drive and go with him to the grocery store, refuse to believe there could be anything physically wrong with me. They don’t see the toll that those short, simple trips take on me. They don’t know that grocery shopping is my ENTIRE plan for that day, probably several days. How the lights and noise and bustle inside the stores give me migraines, panic attacks and leave me in bed for the rest of the weekend. They don’t see the weight of my illness on Geoff and my family. How if I see friends, they always have to come to me. I so often feel like a dead-weight wife, daughter and friend. The times I’m overwhelmed by the ME and can’t decide between crying and being too tired to cry. How many pills I take every day to try and make it to the next day and not be consumed by the constant pain I’m in. They just see a fairly normal-looking girl.

I can’t blame other people for not knowing that I’m sick. I don’t display the characteristic signals of someone who is unwell, so of course people assume I’m healthy. But we need to get to a place where I could tell a stranger that I have ME and they might know what I’m talking about. That if someone else said they have MS or Crohn’s or fibro, that stranger would have heard of those illnesses. That the stranger would have at least a basic idea of our struggle and the dire need for change, for research, for treatments, cures and basic respect.

Join in the #MillionsMissing protests in Washington DC and other locations through the world on May 25. You can participate even if you’re too unwell to join in person or if there isn’t a protest near you!

I’d like to thank everyone in my life, online and off, who has supported me during these trying past eight years. Especially Geoff, who I’d only been dating for a month when I became ill. Lesser men would have run from what he had to face, but he’s stuck with me, no matter how bad things get. And I’d also like to thank everyone for the extremely warm and receptive response you all had to my previous blog post. Your kind words and love and support are greatly appreciated, now and always! ❤

It’s time for all those end-of-the-year blog posts! I admit, I kind of like this tradition. It’s a nice way to look back on things from a larger perspective. And I have a brand new DreamWorld image featuring Travis Weinand for those who want to just scroll to the bottom 🙂

2015 was a… challenging year, to say the least. And it turns out I’m starting it with a fresh, new cold and fever. It has been the worst year I’ve had, ME-wise, so far. It didn’t help that the year began with a crunched-for-time move of houses which literally took me several months to recover from. Medication changes gave me months of terrible headaches and migraines, which also meant that this year was the least photographically productive year I’ve had yet also. Between feeling terrible physically and not having nearly as much access to my art therapy as I wanted, it was a very depressing, frustrating and emotionally trying year as well. All said, I’m happy to leave 2015 behind me and have set my intentions to have a much more fulfilling 2016.

There was some drama in the larger world of ME as well. The US officially changed its name from the very belittling “Chronic Fatigue Syndrome” to the vague and incredibly widely-defined “Systemic Exertion Intolerance Disease.” Most patients and advocates were very unhappy about this and there was a big backlash, which the powers-that-be mostly ignored, as is their usual method of dealing with us. I’m still calling it ME, which is what most of us wanted it to be changed to.

One of the first models I ever worked with, Dedeker Winston, who has continued modeling for me over the five years we’ve known each other, despite me forcing her to wake up early, pose laying in cold, slimy, creeks, regularly get naked in forests and once helping me discover what stinging nettles look like when I accidentally had her pose nude in a patch of them, left for an extended time abroad. She is having a wonderful, life-expanding time and I’m able to keep in touch and follow her journey online and through social media and texts. I was sad to see her leave, but glad that we’d gotten in as much shooting as we did before she left, such as the Pink Mother for DreamWorld. Speaking unselfishly though, I’m really happy she had this chance to do so much traveling and is having such an incredible time! But I won’t be sad when I have the chance to photograph her again 🙂

My dear friend Danica gave me a priceless chance to work with an incredible, stunning, cream-colored Gypsy Vanner stallion named Booger. As soon as I discovered she was horse-sitting him, I began planning a shoot with Katie Johnson and him together, utilizing him in every way I could think of. I have a LOT of his shots still on my hard drive waiting to be edited, but I did at least complete one image from that magical shoot!

I was able to attend another screening of The Last Unicorn, which was absolutely delightful! I dressed up as Amalthea and made a taco purse (get your own here!), which I think was the secret behind me winning the nightly costume contest. I was also able to introduce my dear friends and ex-neighbors Donna and John to the movie for the first time (though I’d already made them fans of Peter’s writing) and they were appropriately impressed.

Speaking of illness, one of my favorite photographers, Ashley Lebedev, let us all know that she has struggled with a chronic illness for a long time. It was beautiful to see people’s support and desire to help her gather funds for treatment. I wish her a much better, healthier 2016 also!

Since 2015 was so heavy with ME, migraines, frequent colds, injuries, deep ruts of depression and stress in ways I have seldom experienced it, an incredibly huge percentage of my physical energy was devoted to simply existing and not giving up. It really underscored how precious my time and energy is and how I need to devote it to things that are worthwhile. No, not just worthwhile, but things which I cannot live life without. The things are dearest and most deeply important to me.

This has given me a lot to think about as I ponder how I’ll change my management of time and energy in 2016. I will try and devote myself to not just ideas I like, but the ideas which I think are the best. The most important. I simply don’t have time to pursue anything less. This is helping to bring my artistic goals into much sharper focus. The dross will be burned away; the leftover gold burnished until it gleams.

I’m also making an effort to set aside more time for self-care activities, like short walks with Calantha or yoga when my body allows, meditation and reading for pleasure. Few things enrich my life (both my actual and imaginary worlds) as much as reading does and I need to make sure I don’t let that slip away from me by being “too busy” for it.

But of course the most important things are the relationships I have with friends and loved ones. Those will always be tended to, nurtured and cultivated as best as I can manage! I am blessed to have many, wonderful friends in my life, online and off, who get me, support me and my art and are incredibly gracious about my health problem. That’s something I should never forget to be grateful for or take for granted.

When I first met model and friend Travis Weinand, I was struck by how truly ethereal he looks. Not simply in pictures or when in costume, he always looks like he stepped out of a comic book, collection of mythology or possibly Middle Earth. With a quick stop-off for a dose of Viking and tattoos. Anyway, I immediately wanted him to have wings. I wasn’t sure how, but I knew he’d get them before we were done working together.

So at our next shoot, I asked him to sit in front of a dark backdrop and pose angelically. He made looking strong, gentle, loving and bad-ass all at the same time look effortless. Editing did take a while since I painted the wings myself and had to figure out exactly how I wanted these “wings made out of light” to look, but it was very worth the effort!

This character lives in DreamWorld, as you would probably guess, a centurion of sorts to DreamWorld’s Queen (whom you have not met yet, but hopefully you will soon). He leads the Queen’s army, the Glorious Guard, but he’s more than just a devoted servant. Part bodyguard, part lieutenant, part enforcer, part adviser, he is a dazzling embodiment of good.

The title of this image comes from one of my favorite poems of George Gordon Lord Byron, All For Love. In it, Byron discusses love being the greatest glory one can receive, far greater than wreaths, trophies or other symbols of glory:

O Fame! if I e’er took delight in thy praises, ‘Twas less for the sake of thy high-sounding phrases,Than to see the bright eyes of the dear one discoverShe thought that I was not unworthy to love her.There chiefly I sought thee, there only I found thee;Her glance was the best of the rays that surround thee;When it sparkled o’er aught that was bright in my story,I knew it was love, and I felt it was glory.

That last line kept repeating and repeating through my head as I edited… thinking about the love he has for his Queen, those he protects and his glorious vestige, so I finally gave in and just used it as the title.

First, let me quickly update those of you who are regular readers. You may remember my Preparing For Battle post where I talked about… well, preparing for the big battle I was about to face. I was sick with stress and worry about it; it was honestly one of THE hardest things I have ever had to do.

But guess what? I WON!!! I’m afraid I still can’t give many details about the nature of the fight, but this is a huge, wonderful victory for me and will help make my life a little bit easier. So thank you VERY much to each and every one of you who said a prayer for me, lit a candle, sent Reiki or good thoughts… they all melded together and produced one hell of a win for me!

Now, with that’s said, let me tell you about my calendars!

Sarah Allegra 2016 Calendar

These guys are always a favorite; they’re probably my single best-selling item. And with good reason! Red Bubble packs a ton of quality into these babies with thick paper, almost like a heavy cardstock or watercolor paper. The pages have a subtle sheen without being shiny. The daily squares are big enough to make notes in. I still have calendars (both my own and from other artists) from years ago which hold up beautifully, even after years of flipping through them to see the lovely pictures!

Sarah Allegra 2016 Calendar

This also brings something else up: getting this calendar is like buying 12 small prints of my work! Each year’s images are different, making each year a unique and collectible item. And if you want to keep the calendar after the year is over, like I do, to enjoy the images whenever you want to pull it out? That’s fine! Red Bubble does a great job at printing the images and making them look the way I want them too; this is a solid buy! You’ll get images which span across my series, from my DreamWorld, Enchanted Sleep, Eternal Storms to self portraits, which feature Katie Johnson, Dedeker Winston, Travis Weinand, Noemi Regalado as well as the beloved author of The Last Unicorn, Peter S. Beagle!

Also, while I was uploading a diptych of Travis for one month of the calendar, I noticed that it made a really awesome pattern for Red Bubble’s leggings. So get your Travis-printed leggings now! 😀

Travis Leggings

All of us independent artists and craftmakers REALLY appreciate your purchases, whether it’s for Small Business Saturday, Cyber Monday, regular holiday shopping, something for yourself, or any other reason you might have! Please keep shopping small in mind during this holiday season!

As we approach the Holiday Season, I’m dedicating the next few days to promoting my artwork-related items, which would make wonderful gifts for anyone! Whether you’re looking for straight artwork you can hang on the walls, some inexpensive stocking-stuffer/Secret Santa gifts, or something with a more practical application, I’ve got you covered 🙂

Today I’m focusing on items which can be found in my Red Bubble shop! I talked about this some in my last post, but I can go into it a little more in its own post. What do I sell in my Red Bubble shop? A LOT. All of the following can be found with my artwork on it!

I started buying Red Bubble calendars before I ever started selling any of my own and I’ve been constantly impressed with the incredibly high quality year after year! The paper is thick and lush, the inks print vividly and the design maximizes the room for artwork! I truly love having one of these in my house each year (and I get frequent requests for these as gifts for friends and family). It’s such a simple way to get 12 unique pieces of art to hang on your wall, adding beauty and magic every single day and it comes at a great price!

I have never had any issues with any of the items I’ve ordered from them myself, nor have I heard anything negative from others. Red Bubble really makes buying fun and easy! You can visit one site and take care of many people on your to-buy-for list and get your shopping done quickly! And if you’re looking for any image in particular on any item in particular, just let me know! I can very likely accommodate any requests!

As always, I sincerely thank anyone who helps support independent artists with their buying power! You guys help make what I do possible 🙂 Keep an eye on the blog for the next couple days as we approach Black Friday and Cyber Saturday/Monday! New items will be showcased and some really fantastic savings will be revealed as well!

I want to give you all a few quick updates here on the blog. First though, I’d like to introduce my first Blackfish-inspired photo today, titled “Concrete Cell.” It is the first in a series, but I was too excited to share this photo to wait until they’re all finished.

The often-cited comparison of SeaWorld’s whale enclosures being the equivalent size of a bathtub to you or me not only deeply saddened me, but also sparked the idea for this photo. Imagine it. When you’re not forced to perform, you live in this sad, colorless, sterile world of concrete and shadows. The intelligence of these whales makes their living conditions even crueler and more heartless; sentient beings shoved into tiny compartments where they die a little more every day.

Secondly, there has been a lot of response tomy post about suicide and Chronic Fatigue Syndrome/myalgic encephalomyelitis. This is one of those topics that is very, very real, but rarely discussed in public. Or even in private, for that matter. There is always a correlation between any kind of chronic illness and suicide, because there is only so much a person can endure. This post has been shared quite a bit already, but I would love for it to reach even more people, and hopefully find its way to the original person who found my blog by searching “I have Chronic Fatigue Syndrome and I want to give up.” I understand that feeling. My blog will rage in its way against cruelties, abuses and atrocities, but its arms are always open to the ill, the hopeless, the voiceless and those in need. This is not a place of judgement. This is a place of love and acceptance.

I have always had a complicated relationship with sleep. Even as a child, I usually dreaded bedtime and the nightmares I feared waited for me. I remember often building a thick fort of my numerous stuffed animals, burrowing myself in the middle of them all, gaining a small feeling of protection from their fluffy bodies.

These days, of course, there are more layers to the problem. My nightly rituals are long, complicated, highly structured affairs; multi-pronged attempts to bring on sleep including pharmaceuticals, natural remedies, special music, mental exercises, and a time schedule that must be adhered to. And with all that, there are many, many nights when I lay in bed, exhausted, but unable to sleep.

It was on one of those frustratingly sleepless nights when my wandering mind started wishing there was someone I could pay to let me sleep; just a nice, straight-forward bribe. And as I thought more about it, I wondered what kind of person it would be who would have the clout to send me into dreamland, and I decided she would probably have to be quite powerful, perhaps even the queen of dreamland… then my mind started imagining what such a queen would look like, and then I was quite awake. I launched into designing the Queen, then naturally, if she is a queen, she needs subjects, so I started imagining them… and eventually I did sleep despite all the brain activity, and when I got up the next morning, I had a huge new series on my hands.

I want to do this right, and create the characters the way I see them in my head. This is going to mean spending more time (and, dare I say it, money, little of it though I have) creating each character. More time pouring over every detail about them; making sure I get it right. And since my ME/CFS seems to have taken up permanent residence in my right (and dominant) arm, traveling up and down from my wrist to my shoulder and back again, setting up little camps of chronic pain as it goes, it’s likely going to take a while before we even get to see too many of the characters. But they will be worth it. Oh, how they will be worth it 🙂

I like my work to act a little bit as a bridge between the conscious and unconscious mind, and this series will do that more dramatically than anything else yet. Much influence is being taken from Carl Jung and Joseph Campbell; the kings of myth and subconscious.

Occasionally there will also be photos that simply capture the feeling of being in a dream, without necessarily introducing any new characters. The first photo for the series that I shot was one of those; concentrating on the feeling of running, being chased but unseen predators, but having home and safety within sight.

A Strange New World

The dress you see there is indeed that long, although the fullness was added to in post. I created it for this series, and I made it with the skirt just absolutely as long and full as it possibly could be. I was rather hoping that either my dog or one of my neighbor’s dogs would end up in the photo, as they were all quite interested in what I was doing, but they managed to evade having a suitable photo taken of themselves 😉

Now onto my first character photo, let me introduce The Corner Keeper:

The Corner Keeper

She is played by the very talented, and exceptionally kind, Anna Wood, an actor you might know from Mad Men, or the movie Chronicle. Anna has the most exceptionally big and soulful blue eyes, which just draw you right in.

The Corner Keeper’s job is to hold onto memories you’re unable to face yet. She will slowly sneak them away, away from your conscious mind, dragging them into dark and dusty corners where they will lay quietly in wait, for years if need be. Any potential attention given to one of her memories will throw up a wall of dust, and once it’s settled, she and the memory are gone again, hiding in a new corner. The thing about minds is that they hold an awful lot of corners. If, however, you find yourself actually able to bear the memories again, she will gladly pass them on… not straight to you though, but into the hands of another who will help you take their weight back on. But that will be dealt with in another photo.

And lastly… I now have greeting cards and calendars for sale! Just in time for the holidays 🙂 If you’ve been wanting a print but are short on cash, getting a card is a great way to own a little piece of it. The calendar features 12 of my most popular images, to add magic and myth to your home all year round 🙂