I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Sunday, March 04, 2007

Day -5

Each morning bright and early Alivia has to get weighed. She can stand on the scale by herself and is seen her proudly doing so.

Alivia's newest trick since coming to the hospital is crawling. Funny cause she never did it before..her belly was always too big and she started cruising so early but for some reason now its a fun new way to escape diaper changing. Luckily she was done getting her diaper changed here. Oh and notice all the tube in my mom's hand. She is now up to 5 tubes. Quite a lot to untangle after she's been running around for a bit. Took the nurse and I about 15 min tonight to figure it all out and Alivia had them all tangled in a few minutes.

The citoxin went as good as it can go. She didn't get nauseas or if she did it was during her nap and she didn't throw up so that was great. She had a bit of blood in her urine but they put cotton balls in her diaper so that they can test them and it shows up in the test before you can even see it. So they adjusted her fluids and a few hours later it tested negative for blood. All in all not the horrible day I was dreading. God has been so merciful to us. We got to see John, Chris and Will tonight (through masks). It was nice to have the change of pace and Livi loved seeing them. They made her laugh and played all the games she has been playing over and over again with us. It was a nice break for us too. thanks for coming to visit guys.

Tomorrow the citoxin runs again from 10-11 and then at 11 the ATG starts. It will run for 6-8 hours and she will be closely monitored throughout the day. Pray for she doesn't have an allergic reaction. Pray she amazes everyone by sailing through tomorrow.

Thanks to Brooke (our nurse today). She did a great job explaining and is officially the first nurse on the 7th floor that Alivia let pick her up. Anyone who knows Livi knows that not just anyone gets to pick her up. Thanks to Cynthia for the rush laundry washing and the uncles for the laundry deliver. We would have been in huge trouble without blankie!!

I'm heading to bed. As you can see its before midnight (if only by a second).

35 Comments:

Thanks for the update. Will be praying for a smooth day, no reactions, and for the meds to do as intended. Praying as well that you are both sleeping so incredibly well right now that you wake up more refreshed then you have been over the last week.

it's a relief to hear the citoxin went so well yesterday . . . God is good! praying all goes well today, and for strength and sleep. thanks for posting pics, emily. it is especially helpful for lane to see livi's face and know who he is praying for. he was up at the computer yesterday scrolling through all the pictures for a long time. he didn't want to stop! i wish you could hear him pray, he does so now without needing to repeat me.

It is so snowy and cold here this morning but it warms my heart to see Livi's funny face. Especially on the scale as this part of a medical exam most people dread, hate, and avoid. She makes it look fun and they should post her picture by every doctor's office and hospital scale to encourage people. Praying for you today especially around 10-11 that all goes super well. pw

emily-praying for you guys and alivia this weekend. will be praying for the citoxin to go smoothly today (no reaction) and that she would continue to sail through the treatment, and to sail through with some sleep and naps. love you-jamie

What a blessing that things have been going well so far. We're still praying and trusting the Lord with you. Praying today for peace with the knowledge that Christ has Alivia in his hands. He already knows the results of the treatmnent & tests. He has a plan for your lives. The pictures are so great - love to see her smiling. Love ya girl - Denise

I guess she's starting the new meds as I type this. I'll be praying today that she doesn't suffer any of the bad side effects; only what benefits her. It's so encouraging to see the photos. Love, Aunt Cheryl

Hi Emily,I'm so glad to hear that everything has gone smoothly so far for your beautiful baby! The two of you are in my heart, thoughts and prayers at all times. Praying that you ARE the family that sails through all of this, and praying that you get some much-needed sleep. I'll be sending pics of my family so that you can put faces to some "strangers" who are praying for you in Indiana!Julie D.

You are doing fantastic with this blog. Thanks so much. I hope you get some therapeutic benefit from sharing as well. Love you guys and pray and think and mention Livi's plight with just about everyone that crosses my path.Still bummed I missed your call. Keep trying when it's convenient.

It amazes me to know that God planned all this for a reason. Though this isn't the best situation you would like to be in right now, he wanted it all to happen. Remember that everything will work out for his glory. Isn't our God amazing? I am praying for you guys. I can't image how hard this is for you, just remember God is there for you, and your family and friends too, as you already know I am sure. I pray you guys all get some sleep tonight. You are in my thoughts and prayers.

So glad to hear that her first day on the new chemo went well! I'll continue to pray that she continue to sail through this stage too.Love the pictures. Nicholas gives me a hard time if I don't show him ALL the pictures. :)love, Vivps. really liked the song!

So many here from Christ Community Church are praying for you. So glad to hear that all is going extemely well. My kids like to see the pictures and they all pray for Alivia each night. With many many prayers,The Joel Madison family

We are still praying, and checking the blog. Thanks so much for keeping us updated. Tonight Celia prayed that "baby Alivia will do well in the hospital". That sums it up, doesn't it? We'll keep praying.

Thank you for keeping us so updated. I love being able to show the kids at school pictures of Livi. Since we've been doing this leukemia drive to help local families afford treatment, Livi gives the kids a real face to the disease. Many of the kids are Christians and are praying for her!

There is not a mealtime grace that goes by, a bedtime prayer that is lifted up, a quiet moment in the morning, afternoon or evening that you are not the subject of our care and constant prayers!! Ethan and Abby are ALWAYS lifting up "baby Livi", Doug and Brenda and constantly carrying you with heavy hearts throughout our days. We love you, we hold on to the Savior's arm, and we keeping asking for His intervening Spirit to do wonderful and merciful things. He is trustworthy.

What precious pictures of Livi.....she is such a treasure. Keep posting the pictures.....It is so good to visualize the special little girl that I am praying for each day. The song is a great choice too! I am praying that God will continue to guide the hands of all the nurses and technicians who work with Livi and that all continues to go well with the new medication. Praying too that He will continue to give you (Emily)strength and courage during the weeks to come. God is so Good. He has a great plan for this preciaous child of His. C Curry

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.