101 Tips for a Good Life with McArdle Disease

“A great introduction to living with this condition. I wish I had this book 50 years ago.”–Nancy McVey, USA

“I love this book!”–Kerry Walsh, UK

“Given how difficult it is to get good information on the condition from medical experts, or get medical experts to listen to what we need when we run into trouble, this book is invaluable!”–Jenny Coyne, Australia

“Very important concepts (simply explained) that often get lost or never communicated with the diagnosis.”–Terri Chambers, USA

Example page.

Practical tips and straightforward information to help newly diagnosed people and those struggling to manage their condition, or just looking for a few extra tips. Also useful to help explain McArdle's to friends and family.

Living with McArdle Disease is challenging in many ways. Running out of energy, cramping and muscle pain are everyday experiences. Even simple tasks like chewing or drying after a shower can be a challenge.

We pass on practical tips which McArdle people have found to be useful. With contributions from McArdle people around the world. The “More than” flash gives the clue – there are actually 125 numbered tips and many are multiple tips in one, so there are around 200 useful ideas in all. We also provide explanations of four key subjects – second wind, the six second rule, your ATP ‘reservoir’ and guidance on emergencies.

This book will help McArdle people to reduce intense ‘anaerobic’ activity and extend more gentle ‘aerobic’ activity. These changes can improve day-to-day life. We also provide references to sources of further information. The aim is to avoid pain and muscle cramps, reduce or eliminate hospital visits and get more out of life.

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If you like it please consider making a donation to keep our work going,
guideline £2 plus (please mention “McArdle’s 101 Tips”).

Printed copies to order

One copy is available free of charge to every diagnosed McArdle person in the UK. (If you have not received one, make sure that we have your correct postal address. Click here to email.) For those overseas and anyone wanting further copies, these are available to order here. List price is £4.50, but it is available from AGSD-UK at £2.80 plus post and packing.

Quantity

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Postal area:

UK

Europe

RoW†

1 copy

£2.80

£4.30

£6.30

£6.90

2 copies

£5.40

£7.60

£9.70

£10.90

£1 = approx. $1.60 US. †Rest of the World.

To order, select your quantity and postal area in the pop up list below, then click on the 'Pay Now' button. On the next page you can pay with a PayPal account or look for the link 'Pay with a Debit or Credit Card' to reveal that part of the page).

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If you wish to order more than 2 copies, these are available at the basic book cost plus post and packing costs. Please contact us for a quotation.

Books are posted using the Standard Royal Mail service which suggests delivery times of 5 to 7 days for overseas packages.

Tracking would add an additional £5 to the postage costs and so is not currently available.

For quotes or for any problems or questions, please contact the Office using our contact form.