National & Local Resources

ALS Association (ALSA)Established in 1985, the ALS Association is the only non-profit organization fighting Lou Gehrig’s Disease on every front.http://www.alsa.orgMassachusetts Chapterhttp://webma.alsa.org

ALS Care ProjectThe ALS Care Project began as an endeavor by Pamela A. Cazzolli, RN to improve the care of people with ALS since 1984 through research and education with an emphasis on living and breathing easier.http://www.alscareproject.org

ALS Family Charitable FoundationThe ALS Family Charitable Foundation of Bourne, MA helps ALS Patients and their families with in-house grants. Their services are open to New England area families and include support for respite, college scholarships, summer camp, back to school shopping, utility bills, vacations and so much more.http://www.alsfamily.org

ALS ONEThe top leaders, researchers, doctors and caretakers in ALS within Massachusetts, have joined forces to bring the strengths of their venerable institutions to an ambitious plan: to bring a treatment to persons with ALS within the next four years.http://www.alsone.org

Angel FundThe Angel Fund is a non-profit organization dedicated to supporting ALS investigations at the Cecil B. Day Laboratory for Neuromuscular Research, internationally recognized for its ground-breaking work in the fight against this devastating illness.http://www.theangelfund.org

Augie’s QuestUnder the banner MDA’s Augie’s Quest, Nieto and his wife, Lynne, are supporting MDA’s aggressive fundraising and research effort aimed at finding more effective treatments and, ultimately, a cure for ALS.http://augiesquest.org

Beth Israel Deaconess Medical Center

Blazeman FoundationThe mission of the Blazeman Foundation for ALS is to raise awareness about ALS and to raise necessary funds to be directed into cutting-edge scientific research to find treatments and an eventual cure for ALS.http://waronals.org

Compassionate Care ALS (CCALS)CCALS is a nonprofit organization that offers individualized support to those currently living with ALS, their families and caregivers.http://www.ccals.org

EndALSTEAM AMERICA is a passionate group of advocates determined to bring an END to ALS by supporting 2 revolutionary ALS organizations – ALS TDI for RESEARCH and ALSRI for QUALITY OF LIFE. EndALS.org is our home and YOU are invited to JOIN US!http://www.endals.org

Muscular Dystrophy Association ALS Division (MDA-ALS)MDA takes a big picture perspective on neuromuscular diseases, including ALS, that limit muscle strength and mobility, so we can reach across diseases to find effective treatments and cures.https://www.mda.org/disease/amyotrophic-lateral-sclerosis

Massachusetts General Hospital ALS Multidisciplinary ClinicMass General's ALS Multidisciplinary Clinic provides the latest treatments and research opportunities for people with Amyotrophic Lateral Sclerosis.http://www.massgeneral.org/als

National ALS RegistryThe Center for Disease Control’s (CDC) maintains the growing registry of ALS patients to help improve understanding of who gets ALS and of factors that affect disease.http://wwwn.cdc.gov/als

Northeast ALS Consortium (NEALS)The mission is to translate scientific advances into new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND) as rapidly as possible.http://www.alsconsortium.org

PatientsLikeMe (PLM)PatientsLikeMe is committed to putting patients first by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you, and organizations that focus on your condition.http://www.patientslikeme.com

PEAC Automation SolutionPEAC is a custom designed environmental control system that incorporates wired and wireless connections and standard automation hardware to allow comprehensive home automation accessible to any web enabled device.http://www.peacautomation.com

Prize4LifeThe mission is to accelerate the discovery of treatments and a cure for ALS by using powerful incentives to attract new people and drive innovation.http://www.prize4life.org

Project A.L.S.The overall strategy is to raise significant funds and direct the majority of the funds raised to the collaborative efforts of world leading scientists.http://www.projectals.org

University of Massachusetts Medical School (UMMS)The University of Massachusetts Medical School's Neurology department is the largest training, research and clinical neurology facility in central New England.http://www.umassmed.edu/neurology

UMass ALS Cellucci FundIn recognition of the critical need for new treatments for ALS, amyotrophic lateral sclerosis, or Lou Gehrig’s Disease, the UMass ALS Cellucci Fund is a movement to drive awareness and funding for the ALS breakthroughs happening at UMass Medical School (UMMS) and in the laboratory of Dr. Robert Brown, one of the world’s leading and most promising ALS researchers.http://www.umassmed.edu/advancement/umass-als-cellucci-fund