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CSF leak post op

Does anyone here have first hand experience with a CSF leak post fusion? DD15's was 11 days ago, and while she suffered a rare CSF leak detected day three post surgery (small pedicles, screw nicked it during operation), it healed post op, and now 11 days post op has recurred. She is on strict bed rest for two days, increased fluids and caffeine.

Recovery has been very rough. Rougher than we expected in terms of pain. But as soon as her back pain began to subside, she was hit with the spinal headaches which is a mother of thing. She cannot sit up for ten seconds. Dreadful pain, Excruciating.

Surgeon. neurosurgeon, head of ortho etc all involved and watching and treating at home now, potentially in hospital if not resolved by Monday.

CSF leaks are pretty common in revision surgery, but not very common in primary surgery in kids or adults. They are, however, one of the more common complications. In the short term, I understand they can be very frustrating. The good news is that it can be fixed. Hopefully, they'll do something (a blood patch probably) tomorrow. Hang in there.

--Linda

Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
I'm sarcastic... what's your super power? --Unknown
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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We are back in hospital today with CT scan tomorrow. Surgeon thinks a small tear seen during surgery but which sealed during surgery may have reopened. Some issue with abnormally small pedicles and screw position. Ugh