Always for the Children

JFF Blog

Sat, Dec 30, 2017

Making A Meaningful Gift!

Category: General

Happy New Year!

Our deepest gratitude for your continued support in the fight against this life threatening disorder. Your 2017 donations have helped meet the unmet needs of patients and families whose lives have been touched by CNM/MTM. Our foundation's cutting-edge research of two decades is forging a path, not only for this ultra rare disorder called myotubular myopathy, but this technology shows great promise for many other indications. Please consider donating if you have not had the opportunity to leave a lasting legacy.

Record setting stock market levels make the gifting of appreciated assets a great way to give. For more information please email us to be connected with an adviser willing to walk you through this process.

Warmly, The Joshua Frase Fnd

About JFF

The Joshua Frase Foundation is an organization with two main goals: To find a cure or treatment for myotubular myopathy and to support families whose lives are affected by congenital myopathies. Learn more.