WELCOME

The skin is the largest organ of the body and without it we would not be able to live. It protects us from damaging pathogens, provides the sense of touch, regulates the heat of our bodies, controls heat loss by evaporation, stores fats and water and gives us a waterproof covering that protects our inner organs.

However sometimes things go wrong with this vital organ and this website is dedicated to all those who are affected by Nodular Prurigo (NP), one of the many diseases of the skin.

As NP is a rare and difficult condition to treat, we believe it is important that anyone affected should have access to the best information available so that they can make informed decisions about their treatment in partnership with their general practitioner/dermatologist.

Our Objectives

The objectives of the website are:

To act as a central source of information about NP.

To offer support to anyone affected by NP.

To increase general awareness of this distressing skin condition.

To promote further and future research

How?

The site hopes to achieve these objectives by:

Providing first class, up to date information andlinks to other online resources.

Raising the subject of NP with the press, media, medical professionals and the general public.

The success of this site depends on anyone with information and advice being in contact and willing to have this published here. We would welcome personal stories, research papers, treatment options and any ways in which you have found it possible to live with or find relief from NP. Please click here to be in touch.

A Final "Please & Thank You"

We hope you find this website useful which is brought to you by voluntary effort and most importantly, donations. If you have found it useful please think about making a small donation by clicking here.

Latest News

SKIN SURVEY

With so little reliable data relating to nodular prurigo, we thought that it may be helpful to get a snapshot of how it normally presents in an individual.

This survey seeks to find out if there are any particular areas of the body that are effected more than others. There are two surveys, one for male contributurs and the other for females. Each survey is split in to two parts, the first being a survey of the front of the body and the second surveys the back.

FACEBOOK GROUP FOR PARENTS AND CHILDREN

25/09/16 - We are pleased to announce that we have created another Facebook group specifically to address the needs of parents who have children suffering from nodular prurigo. You can join at this address - Nodular Prurigo International for Parents and Kids.

Although from the outset of our main Facebook group we have had parents join as members, it has become apparent that their needs have not been fully met within a group that is largely composed of Adult sufferers. It is hoped that members of this new group will develop and expertise to specifically address the needs of children. Like our main Facebook group, this is a closed group so that members can be assured a higher level of confidentiality. All parents who have children suffering from NP are welcome along with anyone who is supporting someone with children who are effected.

DERMATOLOGY LIFE QUALITY INDEX CALCULATOR

The Dermatology Life Quality Index or DLQI, developed in 1994, was the first dermatology-specific Quality of Life instrument. It is a simple 10-question validated questionnaire that has been used in over 40 different skin conditions in over 80 countries and is available in over 90 languages. Its use has been described in over 1000 publications including many multinational studies. If you have a skin condition, see how it may be affecting the quality of your life. Read more >>

TREATMENT SURVEY

This survey has been designed to quantify the experience of those affected by nodular prurigo in relation to the treatment they have been offered. This is in four main areas: