PHA's 10th International PH Conference and Scientific Sessions | The Power of One: From a Kitchen Table to Around the World | June 22-24, 2012, Orlando, Florida, U.S.A, Renaissance Orlando at SeaWorld

Monday, July 2, 2012

We Can Make It Happen

by Mary Jo Piatek

Wow, what a great experience this conference was for me. I learned and
understand this disease so much better now. I would like to thank the
PHA, I was a lucky person to receive a scholarship for the conference,
without it, it may have been a
problem to get there. I went with my sister, both of us were glad we
went. She even said she understands this disease a little bit better as
well as understands the way I feel.

It's such a big world out there and sometimes you think you are all
alone, but now I know that is not the case. Talking to different people,
and knowing we are all in it together.

I can't say enough about the PHA
and the hard work and dedication they put into
this, I'm happy I joined and to be a part of it.

I do wish the disease
could be caught much earlier and one day there be a cure for it. I was diagnosed
2 1/2 years ago and never heard of it before. I guess you can say it was a
new beginning. Sometimes it's still hard to accept.
I know there were some people a lot worse off than me and some were so
much better. All the speakers were great, the Dr's & nurses were
just as great.

Once again I thank everyone who is involved -- you're doing a
great job and it shows. I hope to attend the next
conference in Indiana as well. Keep up the great work and thank you
again. It was an experience I will never forget.

1 comment:

This blog was posted by my sister, Mary Jo Piatek, last year after the PHA Conference. It breaks my heart to tell you she lost her battle with Pulmonary Hypertension last month. Her son is running in the Chicago Marathon to raise funds for PHA in her memory. If you paste this link in your browser it will take you to his story and donation site: http://www.firstgiving.com/fundraiser/teammaryjochicagomarathon2013/anthonypiateksfundraisingpage-1

Please consider supporting my nephew by making a tax deductable donation to PHA through his FirstGiving site.