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NOK 30 million for CFS/ME research based on input from patients

Published: 26.10.2016

The text of the call is based on the 737 recommendations for research questions which have been reviewed by a broad-based user panel comprised of patients, family members, treatment providers, researchers and representatives of the healthcare authorities.

The process is part of a new funding instrument called “user-identified research”. The aim is to fund research projects in areas that patients have identified as particularly pressing and to produce research results that can be applied in the healthcare services relatively quickly.

The Research Council is now inviting researchers to submit a simplified project proposal in the first phase of a two-phase application process.

“User-identified research” is research to generate knowledge of particular importance to users of the healthcare services and whose results can be applied in the services relatively quickly.

In phase one, a user panel will help to assess the relevance of the grant proposal, the benefit of the project and user involvement in the project as well as recommend which applicants should advance to phase two and submit a complete grant application.

“This is the first time we have invited patients, family members and treatment providers to propose research questions in this manner. The process has been both productive and interesting. The 737 contributions and the meetings with the user panel have made it clear that CFS/ME is an area with major knowledge gaps,” says Director General of the Research Council, Arvid Hallén.

“The Research Council wants to help to generate knowledge that can improve patients’ lives, and we hope that we receive many high-quality grant applications to fill some of these gaps.”

The deadline for submission of complete grant applications is planned for March 2017. These applications will be assessed by an international referee panel before the final decision regarding project funding is taken.

More information about the process, the user input and the user panel may be found here (in Norwegian),