Only 2 months until the 2018 Desmoid Dash 5K AND Mother's Day weekend! This year, race day will occur the Saturday before Mother's Day, so start celebrating mom early by spending Saturday morning, May 12th with her, along with the rest of your family and friends. Have you signed up yet?

This is why fundraisers like the Desmoid Dash are so important. All proceeeds from the Desmoid Dash will go directly to DTRF to fund research projects. Support the Desmoid Dash today to help us fund more desmoid tumor research! #desmoiddash

Today is #RareDiseaseDay! Did you know that an estimated 25-30 million Americans are living with a rare disease?

#Desmoid tumors, specifically, affect 2-4 per e...very 1 million people. This life-changing disease can strike at any age and does not necessarily result from a genetic condition. Though patients often undergo multiple chemotherapies, radiation treatments, and surgeries, there is currently no FDA-approved treatment for desmoid tumors. The Desmoid Tumor Research Foundation is the only foundation in the U.S. solely dedicated to funding research to find a cure for desmoid tumors.. You can help The DTRF expedite our mission to find a cure with a donation at http://bit.ly/DTRFGIVE

Although desmoids are rare, research and treatments for desmoids have helped the medical research community better understand scarring, beta-catenin mutations in cancers, and treatment for other more common fibrous tissue tumors and sarcomas. As with most rare disease research, desmoid research has the potential to unlock the mysteries of more common human conditions.

Designated as the last day of February each year, Rare Disease Day is an opportunity for patients, caregivers and advocates in rare disease communities across the world to raise awareness as a unified voice, highlighting the desperate need for more research and better treatments for rare diseases. Please share the graphic below to help amplify this message. Thank you for your support.

On Saturday, May 12th, the 5th Annual Desmoid Dash 5k Run/Walk will take place at St. Thomas Academy benefiting the Desmoid Tumor Research Foundation (DTRF). There will be prizes, good friends, food, music, and more! This event is inspired by Matt Zechmann (STA, 2002).

The race is the day before Mother's Day, so make sure you bring your mom on race day and kick off Mother's Day weekend early with mom at the Desmoid Dash! We look forward to seeing you, mom an...d the rest of your family and friends at the dash on May 12th!

The dash is almost here! It's going to be a beautiful sunny day and we will have great speakers, prizes, and Sweet Martha's cookies! If you didn't get a chance to register in advance you can still register the day of!

Registration and check-in is from 8:00-8:30, then we'll have a few speakers and the race will start at 9:00. See you tomorrow!!!

My good friend Sonia runs for a few reasons – because she’s healthy enough to do so, for her patients and, most importantly, for her fiancé, Matt. And, they’ll both be running, along with hundreds of others, at this year’s Desmoid Dash. Sonia + Matt running the 2015 Desmoid Dash. So, what is the Des...