I am cataloguing all my symptoms as they stand pre-treatment. The idea is that after treatment I can refer back and see whether any of my existing symptoms have changed and what if any new symptoms have appeared. Continue reading “Symptoms – baseline”→

The previous post talked about why I chose alemtuzumab treatment, and what I hoped to gain from it in terms of long term and (with hope and optimism rather than expectation) short term health benefits.

But just as important is to focus on why those health benefits matter to me. Why does it matter if I have a bunch more relapses? Why does it matter if I can keep on walking well, or if I just toddle around as best I can? Wouldn’t that be good enough? Couldn’t I just live with whatever MS has in store for me? People do. Continue reading “Why the “why”?”→

I saw something recently about the mental attitude needed to embark on a long-haul battle – whether that be the long old journey that is Lemtrada, or another long old journey like re-learning to walk after a killer relapse.