This is a blog to chronicle the fabulous life of Connor Robertson. Despite the medical challenges that Connor faces at the moment he is a fighter. As his devoted & loving parents we want to see Connor enjoy all the adventures of life. With the wonderful support & love of our family & friends we intend on giving "our little bug" every opportunity in the world. We invite you to join us as we experience the journey together. May God be glorified in our chronicle of Connor's Adventurous Journey!

Sunday, May 07, 2006

Splendid Weekend For Little Bug!!!!

It has been an absolutely splendid weekend for our precious little bug!!!! He is looking so good and everyone is saying that we are getting really close to going home!!!!! Wow, I can't even believe I am typing those words. Oh Lord, Let it be so!!!!!

Here's an update on how quickly things have changed. The docs have decided to discontinue the 6 week round of antibiotics that they called for 2 weeks ago. He will probably stop this particular antibiotic sometime early this week and then he will have to prove himself by not spiking a fever. If he can do that, then they believe it will be fine to take him off this medication. I mentioned the other day that he did have positive blood cultures, but that was actually good news because now they actually know what they are treating, and it is working. He is feeling sooooooooooooooo much better. He got a blood transfusion on Friday and he has a lot of color back in his skin. He has been on and off the c-pap, but only during naptime and bedtime. There is a possibility that we could even go home with a c-pap machine if he really needs it. They have stopped the Morphine and Ativan and they are only giving it to him as needed and he hasn't needed it in 2 days...Praise the Lord!!!

Today he was doing so well that when I walked in this morning Connor was nowhere to be found. I caught our favorite Nurse Amy walking around the unit with Little Bug in her arms. She was just strolling along without a care in the world. Connor wasn't hooked up to anything. He was cord and wire free and happy as a little bug could be. Randy and I also got to take a proud walk around the unit and show him off. And proud we were. I think we walked taller and straighter than we have walked in months. It was just so much fun to see Connor having such a great couple of days.

I'm sure that this will be a pretty truth-telling week for Little Bug. If he continues on this fabulous run of good days, then we are pretty sure that we could look towards going home in a week to a week and a half. Yes, that's right, I said HOME!!!!! Please continue to pray that Connor remains on this road of healing and that the docs will feel that he is strong enough to make the transition home!!! As always, I will keep you posted and let you know of his progress!!! God is preforming daily miracles and we sense the mighty, mighty hand of God waving his love and protection over us. Thank you Lord for your continued healing touch!!!!

Lovebug Hugs,Lori

PS ~ By the way we hit two major milestones today......1st off, Connor made it to 9 pounds!!!! Yippie....he's finally starting to grow!!!! Secondly, sometime around 11:15-11:30 this morning someone clicked onto our site and we reached 10,000 visitors!!!! Wow, Little Bug is touching the world!!!!! May the world see Jesus shining through this little bugs life and may they be changed for all eternity!!!!

12 comments:

Anonymous
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OH MY GOSH!!!!!!!!! I have goose bumps right now!!!!!!! I can not believe this exciting news but then again I just had to ask myself "why?" "Isn't God the God of miracles tammy?" I am SOOO happy for you guys and we will definitely be continuing to pray for a 100% healing for Connor!!! How exciting to go home and I just remembered how Randy blogged some time ago how he felt that home is where Connor would truly heal. So here you guys go!! YIPPEEE!LoveTammy

Wow! I'm in shock as I read these words. I can't believe you are mentioning the word h-o-m-e when he has been in such dire straits the last week. Your post made our evening!!! How quickly things can turn around. The Lord is good!!!

Halleluiah!!! Home probably sounds so good right about now...!!! It probably would have sounded good a long time ago but.....Did you say 10,000 visitor's have read this? Maybe just "maybe" Connor is an angel here on earth to touch all those live's, ya think?! Yes sirree i do declare (now I sound like Grandpa R.!) I feel like doing a victory dance around my kitchen!!

Connor,

I feel so blessed and special to be called your Auntie, Little Bug! I love ya. auntie Teresa

PRAISE THE LORD!!!!!We are praying for more daily miracles Randy & Lori! I think you are going to have an extra special Mother's day!! God is so good and He is sooooo faithful. Thanks Lori for being so faithful to keeping us updated on your little bug's progress. I pray you and Randy and little bug get the best night sleep ever tonight!!!

OH MY GOSH LORI! What a change in direction!!!!! :) Yippee!!!!! PRAISE THE LORD! My oh, my. Now I'm crying tears of joy. :) God is SOOOOooooooooo good! Randy...Lori...Connor...that day is coming soon that you will walk out of your hospital room, together, walk down the hall, together, walk into the elevator..together...walk out of the hospital.........together, get in the car......TOGETHER....drive HOME......TOGETHER!!!! I will never forget the day we did that. You would have thought that we would have been in a mad dash out the door. But we had nurses, literally, lined up down the hallway to say goodbye to us. And then when we got to the automatic doors of the front entrance, to leave the hospital....I just couldn't help myself but to stop and cry. I had looked forward to that moment like nothing else…….and then we stepped out into the real world. The sun, the wind, the trees....and we drove home together, as a family. :) Our continued prayers are with you. May this moment come sooner than later for you as well.

I'm so excited! I just got in to work and checked the blog. What great news!! We will keep praying that Connor continues to improve and we will hear you have been able to take him HOME!!! How we thank the Lord for this wonderful improvement. I'm in tears just reading this. And people at work are excited for you. I know it has been a long hard time but maybe you have turned that corner toward healing for Connor. The pictures were so great.Just glad we didn't see a picture of Randy and his litte episode. Randy, I didn't know you were such an exhibitionist!!!! Connor is such an adorable little bug. Wow!!10,000 visitors. My, how he is touching lives for the Lord. You are all such an inspiration to all of us.There was even prayer in a coffee shop for Connor last week. I'm so grateful you have such a wonderful supportive family. We love you guys! Jo Ann & Rip

Way to go Connor! And, thank you Lord! Please continue to heal our Little Bug so that he may go home and play with Abbey.

It was so great to read your entries on all of the improvements. And, thank you Randy for calling us to fill us in on the great news. We will all pray that Connor continues to improve and can progress toward discharge.

Randy, we are praying for a quick tour over sandland. Thank you for your dedication to defend our freedom. Go Airforce!

Lori, I am sorry that we didn't make it down after all. There is so much to do before we leave for Washington DC. Thank you for understanding! Maybe our next visit will be at your own home in Auburn.

I am glad that you all had a much better weekend. I pray that it is the corner Connor finally needed to turn to get him on the road to recovery. Praise the Lord that the cultures identified a specific infection type so that the doctors could treat it with confidence.

Lots of loves,Auntie Heather

P.S. Bergen officially began using the word "plane" last week. On Saturday, he added "a-plane." We always talk about how Uncle Randy flies airplanes. It seems that we are in the flight pattern for Whidbey Island Naval Air Station. So, we have plenty of opportunities to see planes go by. We offer up extra prayers for Randy's safety at those specific times.

Last night, Olivia talking about praying for Connor Scott. She wanted you to know that she doesn't pray for Connor just ONCE, she prays EVERYDAY! :)

YEAH!!! I am so happy to hear that you are getting closer to going home. It won't be long before Conner is big enough to say the all familiar child's phrase, "Are we there yet"? I am sure if he could talk now, that is what he would be saying! I am so excited for you guys! We will continue to lift all three of you up in prayer for health, safety & encouragement. I love you guys!

About Me

Hi my name is Connor Scott Robertson. I was born on January 11, 2006. My daddy is a pilot and I think that is so cool. My mommy gets to stay home with me which I think is super neat because we snuggle and cuddle alot. I was born with a special set of circumstances that require me to get some extra special attention from my doctors. I have Down Syndrome and a heart defect called an AV Canal. I have had a pretty eventful 1st year of life. I have been hospitalized most of the time and have spent alot of time in and out of doctors offices. Even though I have had a lot of difficulty so far, I am quite a fighter. My folks say I can do anything I put my heart and mind to and I believe them, because I am fighting really hard to become a big strong boy. Would you all take the time to say extra prayers for me? I know that God listens to our prayers and I believe he will answer our prayers to bring healing to my body. Can't wait to meet you all and have you watch me grow to be a mighty man of God one day.