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This chapter draws together 20 years of research in Britain on the costs of caring for a child with a disability and reflects upon the impact of that research on policy in the UK, in particular policy related to financial support. It begins by reviewing some of the work that has been done on the link between research and policy. Over the past 20 years there have been real changes in social security benefits for disabled children, in terms of the reasons for which they are paid, the amounts paid, and the person to whom they are paid. Research provided a bedrock of information on which...

This chapter draws together 20 years of research in Britain on the costs of caring for a child with a disability and reflects upon the impact of that research on policy in the UK, in particular policy related to financial support. It begins by reviewing some of the work that has been done on the link between research and policy. Over the past 20 years there have been real changes in social security benefits for disabled children, in terms of the reasons for which they are paid, the amounts paid, and the person to whom they are paid. Research provided a bedrock of information on which government departments, the media, voluntary organizations, and think-tanks could build.