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Ketogenic Recipes for Medical Therapies
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323230959348Let’s Catch UP!https://ketocook.com/2013/11/20/lets-catch-up/
https://ketocook.com/2013/11/20/lets-catch-up/#commentsWed, 20 Nov 2013 23:45:29 +0000http://ketocook.com/?p=2475Time. Flies. I never intended on not posting recipes for this long! Life has a funny way of taking over, especially when epilepsy and keto are in the drivers seat. Here’s what has been happening over the past few months… I got to go to Disneyland on my birthday! I even ran into another keto […]

I never intended on not posting recipes for this long! Life has a funny way of taking over, especially when epilepsy and keto are in the drivers seat. Here’s what has been happening over the past few months…

I got to go to Disneyland on my birthday! I even ran into another keto mom who I met in Chicago at the last Charlie Foundation Conference. The world can be so small at times, and you’re not the only keto family out there…even though it often feels like it. Hi Michelle!!

I officially got behind on posting recipes starting with Charlottes 8th birthday. I drove myself crazy trying to make her a keto (3:1) rainbow cake that people would actually want to eat!

Her cake actually turned out OK! She thought it was great, her other friends were mostly good sports about it and ate some as well. The recipe is the same as the Sprinkle Birthday Cake, but instead coloring the whole batch of batter instead of just the sprinkles. I used India Tree natural food dye and the Stabilized Whipped Cream as the frosting.

In June, I was able to participate in a Ketogenic Cooking Class held at Rady Children’s Hospital in San Diego. This was such a wonderful event for current and new keto families to attend! The hospital chef, Chef Larry, cooked KetoCal meals, I cooked whole food based recipes and Tammy Willey presented meals made with Ketocuisine. Parents were able to see meals made at different ratios and approaches to accommodate different types of eaters and needs. It was a great event sponsored by Nutricia North America, organized by RCH dietitian Vanessa Aldaz and the rest of their team. It would be so wonderful if all hospitals were able to offer the same support!

We even took the time to explore La Jolla with the kids. I have always loved it there and we had a great time!

We have a long history of bad, bad, experiences with Charlotte in pools. Ever since she was about 4 years old, she seems to have a seizure every time she is in a pool. When we lived in Virginia, we had beautiful community pools in our neighborhood that we were so excited to use when we moved there from New Hampshire. Charlotte almost drowned one day while I was holding her. She was in my arms, facing out (away from me). My husband and I were watching our son jump in the water while Charlotte was happily splashing around and secure in my arms. It was busy, loud, hot… a lot going on around us. I actually did not realize when her body movements change from playing to seizing. It was my husband who noticed her face was in the water (not just looking down as she had been) and she was in a full seizure. It couldn’t have been more than a few seconds, but we were so worried that she had inhaled water. We left the pool via ambulance that day. Nothing worse than sitting in the ER in a soaking wet bathing suit after your child seizes and nearly drowns.. while I was holding her. As usual, we picked up the pieces and tried to move on… we even went back to the pool, determined to not let Dravet’s Syndrome rule her life. As fate would have it, we left the pool twice more that summer by ambulance. And we never went back. We didn’t put one toe in a pool for the next 3 summers. We thought the trigger was possibly the overstimulation from the water, body temperature change, pool chemicals, ect… we really had no idea other than pool=seizure.

Fast-forward to this past summer, my son who was now 6 years old had no idea how to swim. We felt strongly about giving him the opportunity to learn while he was still young and enrolled him in swim class. I made a deal with Charlotte where she understood she would not be going in the pool but I would bring her fun things to do while we watched JT’s swim class. But guess what… She started having seizures during the swim class! They were very a-typical for her in both frequency and time of day. She was down to about 1 seizure a month (SO GREAT for Dravet’s!) but they were happening weekly, ALL at the pool.

After one seizure, I sat there thinking about why this was happening. Nothing had changed with her diet and meds. She wasn’t going in the water. WHY!!! Suddenly it hit me, the refection off the pool water was so bright at times, I even had a hard time looking at it with sunglasses on. We already knew TV was a trigger for her, could the reflective pool water act the same way? It turns out that it can. Similar to flashing lights, the reflective pool water took up 100% of her field of vision, and it is too much for her to handle. I did a lot of research about photo-sensitive epilepsy, here is some. Remember Pokemon in 1997? An overview of Photosensitive Seizures, and eventually I found this Zeiss Z1 Blue Lenses article. What stood out to me was the address for Dr. Silver in Sherman Oaks, CA. Literally right around the corner from us! I called his office right away. Charlotte still had not even woken up from her last seizure she had at the pool. When I explained what I was calling about, the nice lady took my message and said she would call me back. I honestly thought I would never hear from them. The following week I took the kids to the Getty Museum, I wanted to go see one of my all-time favorite paintings, “Irises” by Vincent van Gogh.

As I was taking this picture with my phone, I was interrupted by an in-coming call. Dr. Silver called me back directly! I briefed him on Charlottes history and our current situation. I was expecting for him to say there would be an enormously long wait to see him, the glasses would be a trillion $$, we would have to go to Germany to get them, ect… Instead he asked if we could come in the very next day, the lenses would be about $425 and we would have to buy frames to put them in. I couldn’t believe what he was saying, it was almost too easy to be true. So the following week (we waited longer so my husband could go) we drove to Sherman Oaks and met with him. They fitted her for lenses, they even let us buy a less expensive set of frames at Lens Crafters right around the corner, and ordered everything on the spot. 3 weeks and $425 later…

…Charlotte has a pair of Zeiss Z1 glasses. Did we run to the closest pool and try them out? NO! I think we’ll wait a little longer for that experiment. She wore them a lot during the summer when she was near any type of water and she is even wearing them at school while she is in a specific room with fluorescent lights. Can I say for sure that they stopped all her seizure triggers? No, absolutely not. But we have returned to her baseline and now we have a little more information and a new tool to help her not have seizures. I would say for sure though, look into these glasses if you think there might be any photosensitive triggers for your kids! Dr. Silvers office apparently works with families over the phone so they can also get these lenses. Dr. Silver is a very interesting person as well! He works in the Hollywood movie industry providing eye prosthetics and cosmetic contact lenses for actors. Here is a link to his office and a list of all the movies he has worked on, It was so neat to meet him in person!

In the beginning of August, we took the kids on a long weekend trip back up to the area we used to live in just north of Sacramento. Steve was stationed at Beale AFB while we were first married… nothing like a little open space to clear your mind!

Like all great parents, we took our kids to the Sierra Nevada Brewery in Chico. Kids love breweries right??! Steve and I could not wait to get back there… they have a great restaurant!

We even went back to the Silver Dollar Speedway which is a sprint car dirt track… the kids thought it was great!

We ate out the whole weekend and I brought all of Charlottes meals pre-prepped and cooked. We stayed in a room with a kitchen, so I cooked a few breakfasts and had a full refrigerator for storage. All in all, it was an easy weekend away. Keto can go anywhere! This is a funny sign…

The end of August, JT and I had to fly back to NJ to attend a baptism. This was only the SECOND time in Charlottes 8 years that I have left her overnight. She was perfectly taken care of by her daddy and I was not worried about that a bit. He made all her keto meals and kept her happy! I just don’t like to be far away…

A typical daddy meal.

On the flip side, even though I hated to be away from them, JT and I had some great quality time together. This trip highlighted for me just how much we sacrifice on a daily basis to keep Charlotte safe. Although we try our best to not let it effect things for JT, it does. Not having to think about meals or seizure triggers for 4 days was eye opening for me. I had never been alone with JT for that long. Im alone with BOTH the kids all the time and alone with Charlotte a lot, but hardly ever with JT. We crammed every activity we could think of into a 4 day period. We went boating, out to eat (no planning required), family parties, swimming in pools, the boardwalk twice (on every ride including ones that spin with flashing lights!), stayed up way past bed times, ate every sugar filled food we could find and flew across country without a bag of medicine, food and letters. It is hard to put into words how much Charlottes epilepsy has changed me, my husband and our family. You can not truly understand what someone goes through unless you walk in their shoes. And I do have to say, I am immensely proud of JT who at only 6 has been such a supportive little (big) brother to Charlotte. Although he has never known anything different, he is kind, understanding, patient and sensitive to her and others needs. He is grateful, happy and appreciative when we do fun things for him and I couldn’t ask for a better son

As the summer came to a close, we enjoyed our beach and made sure to catch lots of sunsets. School was right around the corner!

The first week of September, school started! We were so lucky to have the same one on one nurse with Charlotte this year. It made the whole new school year process go so smoothly. Since CA does not have full time school nurses, we were able to have the school hire a personal LVN for Charlotte. She is both a educational aide and a board certified nurse who is trained in seizure first aid. We are so lucky to have her!

At the end of September, I thought I would get right back to posting since the kids were back in school! However, another speaking opportunity came up and I was able to be a parent speaker at the National Society of Genetic Counselors conference in October. I thought the idea was a great one, for genetic counselors to hear directly from parents regarding their experiences with genetic screenings and syndromes. I thought I would be able to deliver a great perspective about our families thought process and state of mind during the journey to Charlottes diagnosis. I wanted it to be meaningful to the people who often times are part of finding and giving a diagnosis. I was the third parent to speak and after listening to the first 2 parents before me, I was a wreck. I cried the entire time I was speaking. I got my message across as I had prepared it, but I think the main message the genetic councilors took away was how emotionally draining life is and can be when you receive a devastating diagnosis for your child. All three of us who spoke had lots of happy times and pictures to share. We all spoke about the hardest times for our families as well. We are all “functioning” and going through our lives taking each day as it comes. However, at the end of the day, underneath all of the good, happy memories, and the ability to go on with our lives, parents (like me) always remain scared out of our minds, sad for things lost along the way, and terrified of the future bad times that inevitably will happen. Nothing can make those feelings go away, no matter how well things are currently going. It was a worthwhile experience, despite it bringing all those emotions to the surface.

That about brings us up to date… Although I have not posted recipes on ketocook since APRIL (!!!), I have still be working on recipes for the Charlie Foundation. They are very close to launching a new website and updated version of the ketocalculator. There is a backlog of recipes that will show up there very soon! I have also been busy helping the CF with their social media outlets on Facebook and Pinterest. This has been a great way for keto families to connect. So if your not following the CF on Facebook already, make sure you do! Here is a link to their main FB page. https://www.facebook.com/TheCharlieFoundation

I will be posting recipes again very soon. Now that I have this enormous post off my back, I feel like it is time to move forward! My domain and other web stuff has all been renewed, I may move the site to a different platform, but for now I’ll keep posting here. I also may have another **big project** on the way, but no more details just yet!

]]>https://ketocook.com/2013/11/20/lets-catch-up/feed/122475Product Review: Hamilton Beach Half Pint Ice Cream Makerhttps://ketocook.com/2012/07/26/product-review-hamilton-beach-half-pint-ice-cream-maker/
https://ketocook.com/2012/07/26/product-review-hamilton-beach-half-pint-ice-cream-maker/#commentsThu, 26 Jul 2012 16:27:18 +0000http://ketocook.com/?p=1590Please continue to scroll down to read the entire post if you are reading this in an e-mail. I’ll save you time if you don’t want to read the whole review, DON”T BUY THIS PRODUCT! I really wanted this product to work. In fact, I have purchased this little machine twice now, it just looks so keto […]

]]>Please continue to scroll down to read the entire post if you are reading this in an e-mail.

I’ll save you time if you don’t want to read the whole review, DON”T BUY THIS PRODUCT! I really wanted this product to work. In fact, I have purchased this little machine twice now, it just looks so keto friendly; it’s small, it comes in fun colors for kids, it looks easy to use, you can take the cordless one anywhere, ect, ect… However, I have now spent more money on wasted ingredients than I have on the total cost of both machines.

Last summer I bought the model with the cord, this summer I thought maybe they improved the overall design when they came out with a model that takes batteries. Nothing has changed since last summer except for the fact that you now have to pay for batteries and you only get 1 freezer bowl instead of 2. I tried several different ice cream recipes, one with heavy cream and whole milk, one with heavy cream and coconut milk and just straight coconut milk. I just could not get any keto recipe to turn out.

In my opinion, the biggest problem with this product is the fact that the lid does not attach to the bowl. Once you add ice cream to the bowl and begin to churn, the liquid starts to freeze to the sides of the bowl. This is how ice cream makers are supposed to work! However, as the paddle attachment spins around in the bowl, it is supposed to scrape the frozen cream OFF the sides and repeat the process until the entire mixture has frozen. Can you see the lid lifting up from the bowl? It should be sitting flush against the silver edge of the bowl.

With this model, the ice cream will freeze to the sides of the bowl and continue to form a thin layer of frozen ice cream, one on top of another. The paddle does not scrape the layers off, resulting in the lid gradually rising up higher and higher until the lid is spinning and the paddle is doing nothing. All you are left with is a layer of frozen solid ice cream filled with a center of liquid ice cream. Can you see the layer of frozen ice cream around the edges of the bowl? This was about 15 minutes into the churning process (the ice cream should have been done according to the directions). This is also partly a result of the ketogenic recipe. Sugar is an important factor in ice cream making that keeps the final product softer. Since there is no sugar in ketogenic ice cream, it will always freeze harder.

In the directions it states that you may have to “apply gentle pressure” to the lid to keep it from doing this. Of course I did this, but it made no difference. In fact, the amount of pressure it needs to scrape the bowl is enough to make the paddle stop spinning; the motor is just not strong enough.

]]>https://ketocook.com/2012/07/26/product-review-hamilton-beach-half-pint-ice-cream-maker/feed/61590Traveling With Oil, My Favorite Methodhttps://ketocook.com/2012/05/21/traveling-with-oil-my-favorite-method/
https://ketocook.com/2012/05/21/traveling-with-oil-my-favorite-method/#commentsMon, 21 May 2012 17:59:42 +0000http://ketocook.com/?p=1134This is my favorite way to travel with oil. I can weigh the oil in the syringe and know it is safe being bounced around in a bag. The idea to put the syringe in a toothbrush holder came to me a long time ago, however, finding a holder that fit the syringe was no […]

]]>This is my favorite way to travel with oil. I can weigh the oil in the syringe and know it is safe being bounced around in a bag. The idea to put the syringe in a toothbrush holder came to me a long time ago, however, finding a holder that fit the syringe was no easy task! I finally found this one at Bed Bath & Beyond. Here are a few pictures of my system which has worked out wonderfully while on the road!

A slight modification is needed to make it fit. I just snipped the edges of the plunger with scissors.

You have to put the plunger end into the shorter end of the holder, otherwise it will not close completely.

]]>https://ketocook.com/2012/05/21/traveling-with-oil-my-favorite-method/feed/31134Ice Shaverhttps://ketocook.com/2012/05/08/ice-shaver/
https://ketocook.com/2012/05/08/ice-shaver/#commentsTue, 08 May 2012 13:39:58 +0000http://ketocook.com/?p=924Last weekend we had our community yard sale…. I found this for $2.00, so I grabbed it with very low expectations. This particular one is from Japan, I could not find the exact one after searching for it on-line. I was familiar with the old Snoopy Sno-Cone machine which takes a tremendous amount of effort […]

]]>Last weekend we had our community yard sale…. I found this for $2.00, so I grabbed it with very low expectations.

This particular one is from Japan, I could not find the exact one after searching for it on-line. I was familiar with the old Snoopy Sno-Cone machine which takes a tremendous amount of effort to get just a little bit of shaved ice from, however this particular ice shaver is completely different…

You make ice in these cups, I have two…

Put the ice block in here…

Then put the lid on…

2 Minutes Later you have this…

Anyone with a keto kid can tell you a picture like this is worth a thousand words… All of the kids loved the shaved ice, even the non-keto kids!

After searching for this same model on-line, I came up with nothing. I don’t think this was ever sold in the US. I found a few that look very similar…

I saw the Jelly Belly model in Bed Bath and Beyond, it got terrible reviews on Amazon though, so did the Back To Basics one which looks like the same one as the Jelly Belly. If you buy one of theses ice shavers, or have one already, please let me know how it works! I don’t want to recommend something that is a pain to operate! Use the comment section below to share information and other recommendations. If anyone has an electric model that works well, let me know!

The ice shaver is not limed to ice! You could freeze any beverage, even one with cream and shave it. Each cup holds about 210 grams of liquid. You do not have to fill the whole cup to use it. I think some ice cream recipes would work very well in here. I’ll let you know when I try that!

For now, I’m just using this as a fun way to get extra fluids in during the summer. I just used water with 3 drops of flavored stevia, and as you can see the kids thought it was great!