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Tuesday, May 29, 2012

These are some of Nick's episodes that he has started having again. You
will see that after he eats his yogurt, his head drops suddenly for a
brief second, he recovers for a bit, then starts having more. I would
like for one day to be able to get to
the bottom of what is causing these episodes. I am going to have his dr
look at these videos the next meeting I have, and I am going to e-mail
his mental health nurse and see if we can get more answers this time
around. He has these throughout the day, not just when he is eating.
Somedays are worse than others.

Here is what I am talking about concerning the drops. They are sudden,
and don't last long. This was the most he did them today, but yesterday
was a bit more. This is not following his normal path of tics caused by
med increase. We have not increased his
dose for quite a few months now, and these tend to go away for a while
and have now resurfaced. This was also the only time he repeatedly
touched his nose with his fingers and smelled them. Not sure if that is
just a coincidence or not though. Do any of your kiddos have anything
that looks like this? It can happen at any point of the day too,
mornings, evenings, afternoons, no matter what he is doing. I just want
to know what the hell these things are! It is one of the things we are
somehow missing about Nick. I do not know if these are side effects from his med (although I have not increased the dose), tics, or possible small seizures. It has been one of the things that has come and gone and come again for a while now, and I am just wanting some closure on these. I know I may never get it, but I at least have to try.

UPDATE: I have talked with his mental health nurse at the school and she wants to show the videos to his psychologist. Going up there tomorrow to show them to both of them. We will see what happens from thereHe has come home from school and has had numerous more of these. I was able to catch about 20 or so on video.