I wish your daughter good health and decreasing ferritin reports. Splitting the dose work very well. With Exjde ferritin sometimes increase before it decrease. That is normal. However, I hope it decrease soon.Best wishes!

It takes time to clean up the iron load. Continue with her chelation faithfully, but don't expect to see immediate results. Exjade works in the organs and tissue first, so you will not see a reduction in ferritin until the more dangerous iron has been removed.

Hi Andy and All,M back after a long.Feeling nice after coming here back....

On 23rd April, Dr M B Agarwal mumbai based hemo. coming to Rajkot for a Seminar.If anyone has any question please post i wiil try to get the answer from him.

P.S. Dr Agarwal is well known hematologist in India for thalassemics

Dharmesh,

Dr Vijay Ramanan is also hosting a conference in Surat on 24th at place of the child who is 8 months free from transfusion too. My dad is going to go. Are you coming? And guess what, who switched the sides? Dr. Nikhil Sheth will be visiting too. :D

I have the same problem of high level of iron. Its around 15000.But my Dr has always advised me to take desferol for iron chelation. Thy are not giving me any oral chelators which i hav always requested them for. But thy hav always denied to give me asunra or kelfer. My iron level is increasing.. uncontrollable!! Plz guide me how shud i reduce my iron? Shud i start the combination therapy my self??

Secondly, since past few years i hav spleen issues. My frequency of transfusions is 2 units every 2 weeks. My platelts are vry low. 13 thousand only & some times even less.Now my dr hav allowed me to go for spleenactomy. So currently im planning for it.Plz guide me abt wht precautions i need to take pre and post spleenactomy??

Andy, Dharmesh,.. plz guide

Asma

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I may never prove to be good enough for every one...but i am the best for them who Deserve me

You need combination chelation. Your ferritin is too high to handle with just one chelator. Any competent thalassemia doctor will tell you that. If you can manage to get the oral chelator, I can advise you on dosage.