Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.

Wednesday, July 8, 2009

Now We Are So Happy We Do The Dance Of Joy!

{Any Perfect Strangers fans left out there???}

NO AVASCULAR NECROSIS!!!! Woot! Woot!Everything looked great on the x-ray...sometimes it doesn't show up on x-ray, but all the other markers they look for that would indicate further testing were all within normal limits. Yeeee-Haaa!!!!! For once I DO NOT have the rare, crazy side effect. THANK THE LORD!!!!! They are thinking it's a flare up of the reactive arthritis, caused by too big of a drop in steroids. (duh)

K, so here's the plan: the prednisone {we allll know how I feel about it, so I'm just leaving it at that} stays at 30mg per day until I go 3 weeks without pheresis without crashing. Since the prednisone is acting like a ginormous shot of adrenaline, I can't quite imagine crashing! So I go to Ann Arbor this Friday, next Tuesday, and then we won't go again for 3 weeks. Then I will taper down rrreeeeeaaalllyyy slowly again, so it will probably be 4-5 months until I'm back at my base dosage. But that argument is for another day. Tonight we are CELEBRATION ONLY!!!

Thanks again for all your love, prayers, support, meals, cards...I really can't express how much it means.

Followers

WELCOME

Thank you for visiting my blog! I am a Jesus-loving, home schooling mom to a brilliant, crazy, beautiful 11 year old boy, while fighting an illness called Myasthenia Gravis. Life is difficult, but God is good.I am married to MacGuyver (aka Doug) for over 17 years now. Every year gets better.

My passion is to educate people about chronic, invisible illness, Myasthenia in particular. I hope to encourage people to take care of each other, and let others with chronic illness know that life CAN go on.I hope you look around a bit. I'd love to hear from you, and visit your blog.