Cincinnati/Dayton Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at cincinnatidaytonchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Save the date: PKD National Convention 2016

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Working on the Walk for PKD 2015, the signature fundraising event for the PKD Foundation.

Putting information about PKD in your doctors' offices.

Speaking in front of groups speak about PKD at service groups like Kiwanis or Sertoma. These groups usually have a speaker at their monthly meetings, and this is an easy way to help spread the word about PKD. We can supply you with a script, PKD handouts and materials.

Please contact Deborah Watson at cincinnatidaytonchapter@pkdcure.org if you would like more information or to volunteer for one of these jobs or one that you would like to create which uses your talents for the Chapter.

If you are a brand new online customer (which almost everyone is), you must click SIGN UP TODAY in the new customer box.

Sign up for a Kroger Rewards Account by entering zip code, clicking on your favorite store, and entering your e-mail address, creating a password and agreeing to terms and conditions.

You will then get a message to check your email Inbox. Click on the link within the body of that email to have your browser go to the next signup webpage in the process.

Click on My Account and use your email address and password and proceed to the next step.

Click on Edit Kroger Community Rewards information and input your Kroger Plus Card number or your alternate id. It is the long number under the Bar Code on the back of the Kroger Plus Card.

Update or confirm your information.

Enter PKD. Select organization from list and click on confirm.

To verify you are enrolled correctly, you will see PKD's name on the right side of your information page.

If you use your phone number at the register (instead of a card), you can call (877) 576-7587 to get your Kroger Plus Card number.

When you shop, please swipe your registered Kroger Plus Card or use the phone number that is related to your registered Kroger Plus Card for your purchases to count for credit.

Tips:

You must have an email address to apply.

Once you have successfully signed up, your receipts from the store will say a donation was made to Cincinnati/Dayton PKD Chapter. If this is not on your register receipt you are not signed up properly and should try to re-register.

Local Events and Meetings

Chapter Educational Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!

Cincinnati/Dayton Support Meeting

Saturday, Aug. 157 - 8:00 p.m.

Panera - Symmes Township11397 Montgomery RoadCincinnati, OH 45249

Topic: PKD Patient Handbook

If you would like to order your own PKD Patient Handbook, please click here.

PKD Research Lab Tour - June 14, 2015

Members of the Cincinnati/Dayton chapter of the PKD Foundation were introduced to basic and clinical PKD research at Cincinnati Children's Hospital Medical Center and the University of Cincinnati College of Medicine. Dr. Steve Kleene explained how calcium channels in renal cilia could influence the development or repair of cysts. Dr. Brian Siroky spoke about how a failure to accommodate changes in renal salt concentration (osmolarity) could contribute to the development of cysts. The group toured labs where they learn about how cultured renal cells are used to model PKD and how PKD proteins are analyzed. They learned that a new gene editing technique has made it much easier to produce cultured cells that lack PKD-related proteins. They viewed primary cilia on live renal cells using a state of the art microscope. They learned how the amounts of PKD-related proteins on cilia are quantified to monitor changes in response to treatments. Dr. Brad Dixon reviewed recent PKD clinical trials. Dr. Heather Duncan explained how clinical trials are run.

Kroger Tour

The Cincinnati/Dayton Chapter wants to thank our own Beth Klaine, a nurse with a degree in Nutrition, for taking us on a PKD nutritional tour of the Harpers Point Kroger on Tuesday evening, October 21. Beth spent about 1 1⁄2 hours drawing our attention to the sodium, potassium, protein, and sugar content of various foods located through-out the store.

Beth suggested the following web sites, publications and apps if you want to learn more about good PKD nutrition:

Resources

Sign Up to Receive Information From Your Chapter

Next Webinar Wednesday

PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will explain how cysts form and why they are so problematic. He will also take time at the end of his presentation to answer your questions.

Next National Webinar

Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman about what kidney stones are, why they happen and what can be done to treat them.

You Shop, Amazon Gives Amazon.com just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company's website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation's mission to find treatments and a cure for PKD. Learn more at smile.amazon.com