Hello Angie,
I know this is a late post, ran across it today. You sound exactly like my husband. You could possibly also have lupus, as my husband experiences swelling in his hands and feet, has difficulty breathing, and constant chest pain. He has been followed by a cardiologist for 6 years now, he has aortic vlave disease, but the cardiologist thinks his heart is okay. I hope you have found answers, it is truly frustrating and scary to live like that day in day out. I will be praying for you!