ADTKD – RDG

The group was established as part of the RaDaR initiative, in light of the increasing numbers of families being identified with this syndrome and following the pioneering work undertaken by Dr Anne Simmonds and others in the Purine Laboratory at Guy’s Hospital, London.

Group members will offer to collaborate with other groups such as the European Network for the Study of Orphan Nephropathies (EUNEFRON) and the ERA-EDTA Working Group on Inherited Kidney Disorders (WGIKD)