For a few weeks now, my ears get red, hot and burn.
The only thing I have done differently lately, is that I put my hair up and my ears are " exposed", before they were covered by my hair.
I don't spend any time in the sun, but I am under those BAAAAD lights at work. Do you think, it could be the flourescent lights? The lights do not bother any other part of my skin, but I think they are the culprit to my ocular migraines.
Oh I forgot, ones the ears get red and hot, they also itch.
Any ideas?

Debbie

Mica

10-05-2012, 03:32 PM

Have you considered it being your lupus rash. I know my classic butterfly rash spreads to my ears, even when my lupus isn't really acting up. My ears get red and itch like crazy I also get little scabs on them.

tgal

10-05-2012, 09:07 PM

It could definitely get be from the florescent lights. If your ears have always been protected (with your hair) then the exposure could be causing the rash and could, in turn, actually cause a flare if you are not careful. I would suggest trying to cover them in sunscreen and seeing if that works. It would tell you if it was from the lighting

jmail

10-06-2012, 09:02 AM

I got me an idea the other day from a couple posts here, and from doing epsom salt baths... wouldn't it be great if you could dip yourself in a bath or a rinse that would do a sunscreen for you?... 'Course, I can only imagine the allergic reactions some of us would have... lol

As a different way to test your ears Debbie, maybe you could wear a brimmed hat to work one day? Might look a bit odd on a woman in the work place, but cowboy hats go practically unnoticed on men... <)|;^) - that emoticon almost looks like a dunce cap. rather fitting for me, eh? Most work places now have flourscent "filters" on the fixtures (those plastic diffusers), but not all places do that. Of interest: http://www.ncbi.nlm.nih.gov/pubmed/1642660

There's also a listing in wikipedia for Red Ear Syndrome (http://en.wikipedia.org/wiki/Red_ear_syndrome), but the significance of that, I have no idea. It seems like it would be something to mention to your docs though, since it might be part of your malar rash, or something else autoimmune...

tgal

10-06-2012, 11:22 AM

I wore hats to work. Not really for my ears but I began to notice that the top of my head hurt and I was flaring from the lights hitting them. In the US the law says that an employer must allow any reasonable act to help a disability and a hat is reasonable.

debbie-b

10-06-2012, 01:12 PM

Have you considered it being your lupus rash. I know my classic butterfly rash spreads to my ears, even when my lupus isn't really acting up. My ears get red and itch like crazy I also get little scabs on them.

I don't really have a butterfly rash, per se, but I do have some red spots on my cheeks, when I flare. So I guess, it is possible.

Debbie

debbie-b

10-06-2012, 01:16 PM

I got me an idea the other day from a couple posts here, and from doing epsom salt baths... wouldn't it be great if you could dip yourself in a bath or a rinse that would do a sunscreen for you?... 'Course, I can only imagine the allergic reactions some of us would have... lol

As a different way to test your ears Debbie, maybe you could wear a brimmed hat to work one day? Might look a bit odd on a woman in the work place, but cowboy hats go practically unnoticed on men... <)|;^) - that emoticon almost looks like a dunce cap. rather fitting for me, eh? Most work places now have flourscent "filters" on the fixtures (those plastic diffusers), but not all places do that. Of interest: http://www.ncbi.nlm.nih.gov/pubmed/1642660

There's also a listing in wikipedia for Red Ear Syndrome (http://en.wikipedia.org/wiki/Red_ear_syndrome), but the significance of that, I have no idea. It seems like it would be something to mention to your docs though, since it might be part of your malar rash, or something else autoimmune...

No, I can't wear a hat to work, I work in a grocery store. My company would have a fit. We aren't even allowed to drink water at the register, even though I have sjogrens and have to drink water all day long. I told them I can get a note from the doctor, but was told, they couldn't make any exceptions.

Debbie

debbie-b

10-06-2012, 01:18 PM

It could definitely get be from the florescent lights. If your ears have always been protected (with your hair) then the exposure could be causing the rash and could, in turn, actually cause a flare if you are not careful. I would suggest trying to cover them in sunscreen and seeing if that works. It would tell you if it was from the lighting

I have tried that today, so far it hasn't helped, but I'll give it a few more days.

Debbie

debbie-b

10-06-2012, 01:19 PM

I wore hats to work. Not really for my ears but I began to notice that the top of my head hurt and I was flaring from the lights hitting them. In the US the law says that an employer must allow any reasonable act to help a disability and a hat is reasonable.

But only, if you are offically disabled, right?

Debbie

Mica

10-06-2012, 01:37 PM

But only, if you are offically disabled, right?

Debbie

You know through the government it is hard to get disability, try getting a doctors note, and if you have multiple doctors get one from all, and try that. Actually if your main manager in the store won't look at it submit them to the corporate offices. Also, I don't think having a bottle of water and a hat is unreasonable for them accommodate for you. You might want to look into the better business bureau and see if there is anything that can be done.

tgal

10-06-2012, 02:29 PM

But only, if you are offically disabled, right?

Debbie

I wasn't when I wore the hat. It isn't only about being disabled it is about being ill and being able to work. Will give you more info when I am at home. You CAN wear a hat at work!!

debbie-b

10-07-2012, 04:29 AM

You know through the government it is hard to get disability, try getting a doctors note, and if you have multiple doctors get one from all, and try that. Actually if your main manager in the store won't look at it submit them to the corporate offices. Also, I don't think having a bottle of water and a hat is unreasonable for them accommodate for you. You might want to look into the better business bureau and see if there is anything that can be done.

See, it is different here, my main manager is awesome, he gives me every wednesday off, so that I can take my MTX shot on tuesday night. The corporate office can't know about it, because we have to be available 6am-10pm, 7 days a week and if you are not, you have to find another job. Even doctors notes will not make a difference, because they say " anybody can get a doctors note, for just about anything." They don't want to make any exceptions, because other people might take advantage of it.
So, unless I have it in writing, that I am disabled, there is nothing I can do.
Believe me, if I wasn't making good money, $25.00 an hour and all the benefits you can imagine, I would not work there.
To be honest, I would feel funny, wearing a hat in the store, sitting at my register. But I have tried the sun block and if that doesn't help, I will call the doctor and see, if it might be something else.

Debbie

Mica

10-07-2012, 11:34 AM

See, it is different here, my main manager is awesome, he gives me every wednesday off, so that I can take my MTX shot on tuesday night. The corporate office can't know about it, because we have to be available 6am-10pm, 7 days a week and if you are not, you have to find another job. Even doctors notes will not make a difference, because they say " anybody can get a doctors note, for just about anything." They don't want to make any exceptions, because other people might take advantage of it.
So, unless I have it in writing, that I am disabled, there is nothing I can do.
Believe me, if I wasn't making good money, $25.00 an hour and all the benefits you can imagine, I would not work there.
To be honest, I would feel funny, wearing a hat in the store, sitting at my register. But I have tried the sun block and if that doesn't help, I will call the doctor and see, if it might be something else.

Debbie

WHAT kind of grocery store are you working at?! I want your job!
Anyway there are really cute hats that you could wear that won't be completely out of place inside.

Likes Football

03-26-2013, 03:39 PM

Right this minute, I have angry red, hot ears. They are throbbing and itching. It actually feels like sunburn. I had my hair behind my ears, but was sitting by a "Sunbox" I use for seasonal depression. The lights in the room where my computer is, has those little curly lights also. Are the curly lights florescent? And could they be causing it?