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WASHINGTON, DC - DECEMBER 08: Max Schill, a young man with a rare disease called Noonan Syndrome, speaks during an event marking the passage of the the 21st Century Cures Act at the U.S. Capitol December 8, 2016 in Washington, DC. The bill, passed with strong bipartisan support, provides funding for cancer research, the fight against the epidemic of opioid abuse, mental health treatment, aids the Food and Drug Administration in expediting drug approvals and pushes for better use of technology in medicine. (Photo by Win McNamee/Getty Images)