Discussions By Condition: I cannot get a diagnosis.

20-year-old Chronic Pain & Fatigue HELP ME

I've been chronically ill with varying degrees of fatigue since I was 12 without any type of diagnosis from multiple MDs. My symptoms have been back with a vengeance for the past 8 weeks getting progressively worse.

If it's significant, things took a turn for the worst a few years ago when I had a massive, systemic strep infection leading to itching, all of my skin peeling off, and rheumatic fever.

If anyone have any ideas, please, PLEASE, I'm desperate for any idea. My Dr. diagnosed me with fibromyalgia because she couldn't make sense of my labs and symptoms and is sending me to an Infectious Disease Specialist. I've seen two rheumatologists, two primary care MDs, an ENT specialist, and no one can figure out whats wrong. HELP

I can explain all your symptoms based upon your obesity,ADD,and anxiety except for the runny nose and sore throat,which are probably due to allergies and a postnasal drip(Do you have this?),which is a common cause of sore throat.

Hi,I have dealt with a lot of ME/CFS/Fibro cases. The ESR and CRP (and white cells) are not usually raised. If the latter was fairly recent and coincided with the commencement of the muscle pain then consider polymyalgia rheumatica which needs steroid treatment in which case you should discuss this with your doctor.

No post-nasal drip, I've used every single antihistemine known to known to man and nothing helps the runny nose. No known allergies. As for the obesity, after losing fifty pounds and when I was thinner, symptoms were just as bad, if not worse after losing weight. The anxiety only developed in the last 2 years after finally managing my depression, and the ADD was just diagnosed in August of 2008. My GP of 18 years told me the same thing about the obesity - if you lose weight all of your symptoms and problems will go away. Your'e doctor saying "your'e sick because your fat," isnt the best way to diagnose a physically miserable, depressed teenager (in my opinion.) I know losing weight will help; I've been obsessing and dieting since I was 5 years old. What's wrong with my isn't 100% obesity, that's why I'm so incredibly frustrated.:(

Hi, I have dealt with a lot of ME/CFS/Fibro cases. The ESR and CRP (and white cells) are not usually raised. If the latter was fairly recent and coincided with the commencement of the muscle pain then consider polymyalgia rheumatica which needs steroid treatment in which case you should discuss this with your doctor. "Polymyalgia rheumatica symptoms may include: Moderate to severe aching and stiffness in the muscles in your hips, thighs, shoulders, upper arms and neck Fatigue Unintentional weight loss Weakness or a general feeling of being unwell Sometimes, a slight fever Anemia — low red blood cell count" Besides the weight loss, I have all of these; chronic low-grade fever, chronic anemia (very mild) and the locational pain. Is there a diagnostic test for polymyalgia rheumatica? :confused:Sarah PS Thank you all for the input and suggestions:)

On Polymyositis - wouldn't creatine kinase (CK) and aldolase be tested for in a Complete Blood Panel? No problems with swallowing, just painful, and more pain than weakness. Plus, I've seen two rheumatologists and a neurologist (for an unrelated condition,) wouldn't they have picked up on polymyositis in their bloodwork?

Hi, I have dealt with a lot of ME/CFS/Fibro cases. The ESR and CRP (and white cells) are not usually raised. If the latter was fairly recent and coincided with the commencement of the muscle pain then consider polymyalgia rheumatica which needs steroid treatment in which case you should discuss this with your doctor. Halle suggested the polymyalgia rheumatica - I've never even heard of it before today.

Halle suggested the polymyalgia rheumatica - I've never even heard of it before today. I'm seeing my primary on Friday - I'm going to ask her about polymyalgia rheumatica just to gauge her response. Maybe ask about a cranial artery biopsy to rule out giant cell arteritis (migrains + SED & CRP off the charts) Thoughts?

Saw the doctor today for a follow up on my lyrica. She didn't feel I have polymyalgia rhematica based on the fact that my SED rates have been running in the forties and fifties, and all the patients she's seen were well over 100 on there SEDs. All I got was suggestions to eat less refine foods and to exercize for the pain and fatigue. No upping the Lyrica (starting dose is 50mg x 2) where the theraputic range is 400mg x 2 a day. She save me Prilosec because I've been taring my stomach to shreds with the amount of NSAIDs I'v been taking, eventhough I'll still in complete agony. No muscle relaxers, no pain meds, and I'm sick of living like this. It takes me 15 minutes in the morning to stand up straight because my back hurts so bad. The same for sitting in 2 hour classes. Frustrated - I guess I'll just start eating raw food for awhile and exercize daily. I should be doing that anyway...:(