Open heart surgery at just eight hours old.

Jessica pictured above, has hypoplastic left heart syndrome (HLHS), a rare potentially fatal heart condition which affects one baby in 5,000. She had her first open heart surgery when she was just eight hours old then another at three months, spending her first Christmas in hospital.

Action is funding research which will create virtual 3D models of babies' hearts. These will be used to select the best surgical technique for each baby, with the aim of increasing chances of survival.