Team KISS was in full swing this April! Big thanks to all of our Team KISS superheroes who kicked in for Sarcoidosis Awareness Month! Our annual walk event was based in Atlanta, GA, but we were joined by a record-breaking number of walkers in person as well as...

It’s National Volunteer Week! We want to take a moment to thank all of the awesome sarc warriors and their loved ones who have joined the fight against sarcoidosis. Whether you’re participating in a Team KISS walk, helping us Paint the Map Purple,...

A sarcoidosis PSA is now playing on NBC in nine major cities across the US. Check it out below and see if it’s playing in your city! Help us by spreading the word and raising awareness about this potentially devastating disease. The PSA is now playing in New...

Here at FSR, part of our mission is to bring educational experiences and knowledgeable physicians to as many patients as possible. That’s why we’re proud to be hosting a record of seven patient conferences all across the country this year. We know it’s difficult for...

Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even...