I hope you can help make this end stage as comfortable for her as possible and that the nursing staff have good palliative skills to give her heaps of pain relief and you can just be with her, she will know even with lots of meds.

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"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

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Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.