Hi there, my daughter was diagnosed with an AVM on 4th Jan 18. We were referred for angiogram which happened last week and we are due to meet with the consultant on 20th March to go through all the results. However we saw on the angiogram notes that they are suspecting it’s a CPA AVM! We didn’t know what this was but have looked it up and are in complete shock by what we are reading! Our daughter is only 6 years old and we feel completely devastated this is happening! I don’t really know what I’m asking here but I’m just reaching out to see if anyone can shed any light on the horrible diagnosis for me! Thank you!