is the story of one family's journey through life with a very special child with Down syndrome and a complicated medical history and how we have learned to DANCE through the tulips.

Monday, November 23, 2009

Bad cold

Well, now she's got a cold with stuff coming out of everywhere. She's remaining in pretty good spirits though and so far so good with breathing! Phew.

As for the shiner below, I guess I may have purposefully omitted the "how" because I banged her head on my knee when I was holding her and went to sit down!!! Talk about feeling terrible! Now that she's mobile she's got all kinds of bumps and bruises!

Pray for Dillon

About Me

I am a 44-year-old woman whose life changed when I learned my third child would be born with Down syndrome. Right away I knew that our lives would be changed forever, I just never in my wildest dreams could have imagined it would be like this. This is my family's story.
In the months preceding the start of this blog, starting when Chloe was just 6 days old, she had 7 hospitalizations, 1 open-heart surgery, and 1 g-tube surgery. She was the youngest child at our hospital to ever be put on CPAP at home for Severe Obstructive Sleep Apnea. She had a TINY opening to her airway and therefore frequently suffered from upper respiratory incidents. Chloe also had GERD and was being considered for a Nissen Fundoplication. But she is an AMAZING fighter and the happiest girlI've ever known!