Share Your Experience in Advocacy

"Genetic Alliance is partnering
with Parent to Parent USA (P2P) and Family Voices (FV) to collect resources
that will support individuals who wish to act as advocates on behalf of
themselves, their families, or others living with the same condition. The tools will be part of an
accessible online toolkit, with advocacy resources grouped by topic area.

They would like to include
a personal story that demonstrates the importance of advocacy from an
individual, family member, or caregiver in each of the toolkit topic areas. For
this project, 'advocacy' can include any example of a time when you or your
family communicated a need, shared your story, or took steps to get something
you wanted or needed.

Do you have a story to share about advocating in one of the following areas?
· Youth Leadership
· Transition to Adulthood
· Insurance and Financial Assistance
· Communicating about Your Health
· Access to Health Care
· Accessible Communities

To have your story included in the advocacy toolkit for individuals and
families, please send a 1-3 paragraph summary by Friday May 31, 2013 to Sharon Romelczyk,
Program Manager at sromelczyk@geneticalliance.org. Please only
include information you wish to be shared, including any and all names or
other identifying information. If we include your story on the toolkit,
we will contact you to let you know your story has been selected. Please let us
know if you have any questions about the stories, how they will be used for the
toolkit, or the toolkit in general."