CareCure Forums - Caregivinghttp://sci.rutgers.edu/forum/
Problems, solutions, triumphsenSun, 18 Feb 2018 05:07:32 GMTvBulletin60http://sci.rutgers.edu/forum/images/misc/rss.pngCareCure Forums - Caregivinghttp://sci.rutgers.edu/forum/
Possible Travel to Florida - Need Local Caregiver Support (Light)http://sci.rutgers.edu/forum/showthread.php?261795-Possible-Travel-to-Florida-Need-Local-Caregiver-Support-(Light)&goto=newpost
Sun, 11 Feb 2018 23:31:32 GMTI may need to travel to the Orlando, FLA area later this year for work and I'm interested in connecting with an agency that can provide someone for maybe an hour or so every morning just to help me get started. No Bowel program involved here. Just things like maybe helping me around the shower to make sure I don't fall and speeding things up so I can get dressed and quickly get on the road. I'm a C7 level injury.

I seem to recall someone in the forum mentioning an online agency that helps people travelling in situations like this, but I can't seem to find the discussion thread. Any clues to the thread would be greatly appreciated.

Thank you!
]]>CaregivingHockeyFanhttp://sci.rutgers.edu/forum/showthread.php?261795-Possible-Travel-to-Florida-Need-Local-Caregiver-Support-(Light)Bowel Accident in Chair?http://sci.rutgers.edu/forum/showthread.php?261775-Bowel-Accident-in-Chair&goto=newpost
Thu, 08 Feb 2018 02:59:17 GMTMy daughter had a bowel accident in her chair. Very loose. She did have a brief on but it seeped out of course.

In her 8 years of SCI this has never happened. Anyone have any ideas on what I should check? We've already talked about what she ate today, she did bowel program earlier with good results and I'm just wondering what I'm forgetting?

She had already taken an Imodium before she called me.
]]>CaregivingDomosoyohttp://sci.rutgers.edu/forum/showthread.php?261775-Bowel-Accident-in-ChairMACE / Malone Procedurehttp://sci.rutgers.edu/forum/showthread.php?261649-MACE-Malone-Procedure&goto=newpost
Fri, 19 Jan 2018 20:28:23 GMTI am a 44 yr old female C6-7 incomplete spinal cord injury. 26 years post injury. My mom has been my caregiver for all my bowel needs. I have a worker through an agency paid by Medicaid but they won't pay the worker to help me with my bowel program. In 2012, I had a bladder augmentation and the mitrofanoff surgery done. I am so pleased with that and it has given me tons of freedom and independence. My mom is 70 and I'm so scared what will happen when she can no longer help me. I have an 11 year old son and don't want to end up in a nursing home just because I can't manage my bowel program. I've been researching things and came across the MACE / Malone procedure. This seems kind of promising to me and I'm looking for advice from anyone who may have had this procedure done before. Is it a good idea and what information can you supply me with?
Thanks
]]>Caregivingdaniellegauberthttp://sci.rutgers.edu/forum/showthread.php?261649-MACE-Malone-Procedure