My fight against Lyme Disease

Chronic Fatigue Syndrome

What a great summer this one was for us:) The apartment construction work is almost done. I had the most wonderful and unexpected visit for Easter from two of my brothers: Sergiu came from Germany and Flesh came from Romania. They took me completely by surprise:) We had a great time showing them Seattle, among other things and after they left and the weather warmed up, Chet and I spent many hours cycling on bike trails with my in-laws:) I also took lots of macro photos, a hobby of mine, and you can see one such photos at the very top (honey bee on a clover:)

I’m getting stronger every day. I have changed my Lyme tincture treatment to a new product and so far I think it helped me the most (or I’ve had lots of help from previous treatments and this one sort of sealed it). It’s a new product I found on Amazon called Holistic Tincture 7, made in Germany. It’s a 13 Herb tincture (Japanese Knotwood herbage, Teasel root, Cats Claw flower, Coriander herbage, Garlic, Hawthorn leave, Sarsaparilla root, Devil’s Claw root, Boneset leave, Astragalus root, Olive Leaves, Panax Ginseng root, Ginkgo leave) specifically design for those suffering from Lyme. Currently unavailable on Amazon as of today, but you can go directly on their website at http://www.biotraxx.eu to order. Heads up their info is in german (Amazon has an English version), and you need to take 20 drops three times a day for 6 months. One bottle lasts about 2.5 weeks.

It really helped me so I hope it does the same for you:) (The cost is around $28 per bottle plus shipping $7).

This year we’ve celebrated our 26th Wedding anniversary:)

I’m grateful and I’m looking forward to the wonderful things to come in this life:) So keep on fighting for those ones not yet on the other side because there’s hope:)

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This post is dedicated to one amazing young lady, you know who you are:)

The pain within is masked by how well we look on the outside. If only the world knew how much suffering is enveloped within each cell, each joint, each muscle and each neurological signal hidden in the matrix of our bodies. If only our friends knew how much we hoped to be part of what once was, if only the world would understand how loud they really are and how much that seems to bother us, suddenly. At one point we were part of the busy, loud and aggressive world but now we hide in suffering beds, feeling every surface of our tissues and wondering “what’s going on?” We’re silent about our suffering because, at times, we feel like we’re losing our minds, something truly terrifying. We can no longer comprehend what we’re reading and when you want to talk to us, we stare with a smile on our face trying to grasp the words that no longer make sense in our mind. Our bones hurt, our identity and value hurt alongside as well.

We used to be normal. God, what happened?

These are the inner cries of those suffering from any autoimmune issues, such as Lyme disease, Chronic Lyme with multiple co-infections, Cancer, Fibromyalgia, Chronic fatigue syndrome, ME, Lupus, and many more. These are some of the unspoken words and emotions, fears and concerns lingering within.

But, on the other side of these emotions and fears (at one point in the past I felt them all and then some), stand those of us whom, with God’s help, are slowly coming out of such a dark road. We’re here to let you know that you’re not alone, not even close to it and THERE IS A LIGHT AT THE END OF THIS AWFUL TUNNEL. I’m starting to re-live my life, even better than before because I know now how valuable life truly is, how important people are but ultimately how important I also am. You are just as important:) I have boundaries, I keep toxicity at bay, I smile to the things I used to ignore and I ignore the things I should’ve deemed unimportant a long time ago.

Cheer on dear one, this too shall pass, and one day you’ll be back among your friends, most likely some new ones, and you’ll build new memories and you’ll laugh again full of life and most impotantly- full of health.

Thank you, God, for each day and God Bless:)

To the ride ahead and not behind I say “hello” with a smile on my face:)

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ME or Myalgic Encephalopathy, also known as CFS or Chronic Fatigue Syndrome or Conversion Disorder.

It’s surprising how about 99% of her symptoms I dealt with and some which remain still deal with. The good news is that I feel soooo much better, despite the mild relapse the past month where I couldn’t touch my chin to my chest due to stiffness and intense pain in the back of my neck and fatigue unusually higher than usual. I’m back on Lyme 2 a tincture that helps calm down the symptoms. I still have a very stiff back neck that crunches all the time I touch but I am so grateful for life in general that I move along:) I have a part-time job now; two hours two times a week cleaning a house, and I’m so happy and proud of myself to be a working woman again. I have deep anxiety before I have to leave, but I take Neurocalm which helps me and this week I’ve just begun drinking Sarsaparilla organic tea which gives me quite a bit of energy and calms my central nervous system as well. Amazon has a brand I use called Buddha Teas, but there are other brands out there to choose from.

For all fellow Lyme Disease, ME, CFS, Conversion Disorder, Cancer and other Autoimmune Issues too many to name, I honestly pray for your complete health or at least bearable symptoms. The cure is out there, we haven’t found it yet. Meanwhile, keep fighting, keep researching and do whatever it takes to heal yourself because if we are to wait for western medicine to do it for us we’d all be dead by now. Maybe one day they’ll catch up as well because they’re seriously behind in autoimmune disease knowledge.

Merry Christmas to everyone reading this blog and a Happy New Year full of an unexpected improvement in your lives.

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As you can see from the pictures below, we’re living in a bubble during the following renovations months.

Due to asbestos and lead findings in the windows seals, the whole building, along with all the windows, has been fully wrapped in a protective white plastic sheet. At least it’s not black:) Even though it’s suffocating and unpleasant at least is a temporary inconvenience. In comparison to other people’s lives who have been ripped apart by all sorts of tragedies, this inconvenience is minuscule. So I’m greatful.

I find myself outdoors taking daily walks and on such walks, sometimes, I bond with neighbors. This morning I was talking to a retired female who used to work for the Post Office and lived in Seattle, where she was also born, most of her life. There were a few years back in the old days spent in Canada when she used to be married to her first husband, who happened to be a Canadian. She liked living there, mostly but found herself frustrated over a few of the socialistic perks, specifically health care. While talking about this and that she turned the conversation towards the politics. I understood the temptation since we just had mid-term elections on the 6th of November. I could swear that suddenly I was talking to my in-laws. She used the same terminologies and verbiage, the same quotes and so on. The thing is, my in-laws and this woman never met, to my knowledge, yet her words were eerily similar if not verbatim to those of my-in-laws when it came to her political point of view. I walked away knowing such verbiage was learned from TV news reports or newspaper articles, which reminded me how powerful the media is in shaping people’s minds. And that gives me a lot to ponder on regarding my personal thoughts and beliefs which I constantly evaluate and re-evaluate and change when needed because inevitably our world has an influence on us.

On a personal note, I have a part-time job now and it feels fantastic to get back into the swing of things. I’ve joined a book club as well and being part of the community around me is good not only for the soul but for the body as well. Small steps, giant accomplishments:)

Chet’s B-day, yesterday, was a happy event celebrated in the intimacy of our family:) Next week we’ll be celebrating my beautiful girl Meleah’s B-day:) I can’t believe she’s turning twenty-two years old. Time sure flies when you’re having fun, or even when you’re not having fun:)))

Merrill moved in about three months ago and we’re complete again, even if a little cozy in the small apartment. I would much rather have it this way.

Happy with our lives, thankful to God for health, peace, and love. I hope you’re doing well. (For the Lyme sufferers or all other autoimmune disease sufferers, keep on fighting because there is light at the end of the dark and most days unbearably painful season you find yourself in now. Psalm 23 rescued me.)

God bless:)

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I began this web/blog site with the intent to keep a track on my medical info, since my short-term memory was seriously injured- still is to a certain degree, which can be a fantastic blessing when I get frustrated over small things, because I soon forget them and I’m left without a reason to stay mad:). Another reason was to encourage, if possible, anyone out there in the same situation as mine.

I had a great job and relationships before the illness, my life was on a high peak of happiness and contentment and I worked hard to get there. That changed literally overnight. But something that took me by surprise was the loneliness that trickled in along with the illness, like two best friends, inseparable and intent on causing trouble. I was cast aside, no longer a productive and effective member of the society. I call it “the silent depression” and I now understand how horribly it afflicts the ill, especially the chronically ill, and the senior citizens. With Lyme, as with other toxic and neurological illnesses, the mental clarity and health deteriorates and one’s personality changes. I used to feed off the energy of multitudes of people and found solitude boring and useless. Not now.

So I sat down this morning having my breakfast of tea and a gluten-free/vegan carrot/banana bread (not my usual breakfast, but I baked last night:) thinking of all the other ill people out there in the world and the loneliness they may be experiencing. What can I say to be of encouragement? What encouragement can I receive for myself?

For those who believe in God remember that He used the most imperfect people, men and women, to do great things through. It’s never too late, you’re never too weak, to ill or too fragile to be a strong force for those around you. I am like Issac who was a dreamer, but God ended up doing great things through. What about you?

Meditate on good things (health and a cure and remember not everything has been discovered. I strongly believe there is a cure for Lyme, Chronic Lyme, Neuro Lyme etc, even if it has not been discovered yet, but above that I believe that our body has the ability to heal from anything if given the proper balance of nutrients and extracting all toxicity out of it).

Help others. (That means even if you can only pray for them, or smile at them, or give one word of encouragement, it gives you a temporary break away from your troubles).

Make a plan for what you want to do when feeling better and start planning towards that. Here you’ll have to be realistic and change some of the past goals and plans.

The internet is a source to reach out, through support groups, but be careful not to get stuck in the negative cycle of complaining only. Some days you’ll need to unload, and you should do so keeping in mind that your audience is hurt too, but than don’t forget to smile and laugh. (Watch comedies).

The best cure for loneliness is health and being part of the society once again, until then fight like hell to get there, and I promise you once you make it to the other side a wiser person will emerge on the other side.

I’m reading this book now, and I love it. It’s a look into the human body/autoimmune/cell function with a biblical insight as well. For those who don’t have a passion for the medical field, this may be a bit boring, but it’s not hard to understand. Well written and an easy read.

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Four years ago, in the middle of suffering and when my life was spent mostly in bed for months at the time in unimaginable pain, I kept my focus on a particular image; a sunny day in the future enjoying myself as a healthy woman in the middle of nature- God’s creation. This day came to past a few months back, however, a week ago we enjoyed our first vacation since 2014, four years ago when I fell ill. I can not express the intense joy I felt during multiple moments throughout this vacation and the thanksgiving my heart expressed to God for having the opportunity to re-live such moments, even if at some point the body began to protest intense fatigue. All I did, was to take time and rest, then resume our activities.

Why am I writing this to you? Because you’ve read and seen the side of me through pain and now I want to share the other side, the side of health, the walk of health, the walk towards health. While in pain, I visualized daily the very moments I finally got to live this past week! In the past, although the body was full of death threats, no one could steal my dream hidden deep within. Never give up and if you feel fatigued in your body or in the spirit, take a few moments to rest, then go on keeping your focus on your own image of hope. For me, that image of hope was in the middle of nature, the very nature where my suffering came from through the tick bite but I was determined not to let this pain keep me a prisoner of fear.

If you are in the midst of suffering right now, what would your focus of hope look like? Joy, peace, love, safety, new friends, health? These are the most important and in the end, these are the fruits of God’s love for us, the acceptance of our own being (the creation of God) and the love of our neighbor. Forgiveness is the way which leads to them, forgiveness and perseverance. (I know some of you will contradict this last part, as I too contradicted this part in the past, especially forgiveness. I found excuses, telling myself that I was not the one who needed to forgive, I was the hurt one and not the abuser, but I was blinded by my own anger and hurt. I forgive so I can heal. I’m also wise and not allow broken people to determine my destiny.)

I wish you a beautiful summer day, a beautiful holiday for those of you who are or will go on vacation and the grace of God may continue to be upon us as always.