MND Musings - This is a record of a chronic illness, Primary Lateral Sclerosis, a Motor Neurone disorder, like a slow MND / ALS. My body may not be very cooperative; in fact it's become as stubborn as a donkey, but I'm not dead yet.

Monday, 22 May 2017

I was a bit disturbed this morning listening to World Business, I think, on BBC’s World
Service. They were talking about women at work, things like the gender pay-gap,
maternity/paternity leave, and the small proportion of women on company boards.
Sweden was focused on as the “best” for women at work.

The assumption was of course that good = being in remunerated
employment. Now far from disagreeing with that, I think that the opportunity to
do a fair day’s work for a fair day’s pay is highly desirable for everyone,
women and men. But it is not the only good. That is a modern and harmful
fallacy.

What most struck me was a comment about bringing up a family
at home being “drudgery”. Drudgery? Hard work – certainly. But as Jane pointed
out to me, nearly all work has an element of drudgery in it. Sitting in front
of computer screens. Answering phone-calls in a call centre. A production line.
Agricultural labour. Even the caring professions. But home management is not
exceptional drudgery; it’s not unusually dull. In fact there’s probably more
variety and skill in being a housewife (or househusband) than the majority of
jobs. It’s time we stopped running it down as somehow second class (or third…).

Thursday, 18 May 2017

I listened to two items on the radio this morning.The first was an interview with Sir Andrew
Dilnot and the second was a reading from Henry Marsh’s Admissions.And I can keep
quiet no longer.

Sir Andrew Dilnot, economist and the country’s leading expert
on social care (You may remember his authoritative and widely welcomed report
on the subject, which broadly recommended a national insurance scheme to take
away the fear of the cost of care in old age - https://mydonkeybody.blogspot.co.uk/2011/07/medical-day.html),
was commenting on the imminent Conservative manifesto proposals concerning
funding for the elderly.You can hear
the interview here - Today programme,
at 1 hour, 10 min in. He was measured and he was scathing in his assessment.

According to a newspaper account, ‘Theresa May’s social care
package fails "to tackle the biggest problem” facing elderly people, the
man who carried out the coalition’s review into service in
England has said.

‘On the election campaign trail the PM
had said politicians could no longer “duck the issue” and that
the Government had been “working on a long-term solution” for the needs of an
ageing population.

But Sir Andrew said he was “very surprised” by the new
thinking from Downing Street. “New thinking that I’d argue shows a less than
full understanding of the problems when there is a green paper that is due to
come out later this year,” he added.

‘Speaking on BBC’s Radio 4 Today programme, Mr Dilnot, who is
also a former head of the UK Statistics Authority, said: “The disappointment
about these proposals that we’re expecting to hear in the Conservative
manifesto later is that they fail to tackle what I’d argue is the biggest
problem of all in social care, which is at the moment people facing a position
of no control.

“There is nothing you can do to protect yourself against care
costs; you can’t insure because the private sector won’t insure it and by
refusing to implement a cap. The Conservatives are now saying that they are not
going to provide social insurance for it, so people will be left helpless
knowing that what will happen is that if they are unlucky enough to suffer the
need for care costs they will be entirely on their own until they are on their
last £100,000.

"The analogy is a bit like saying to somebody you can't
insure your house against burning down. If it does burn down then you're completely
on your own; you have to pay for all of it until you're down to the last
£100,000 of all your assets and income," he said.’

(The Independent)

Someone whose political views are unusually well-informed and
reliable messaged me this morning. “Cruel, cruel Conservatives! Sir Andrew D
very good on it on Today. Cost needs
to be socialised not put on individuals like this."

And he’s right. It’s not just social care which is at risk. Henry
Marsh is an eminent neurosurgeon. His book, Admissions
– a life in brain surgery, was published a fortnight ago. He retired from
the NHS in 2015. In today’s reading he recounted a day’s operating list, of
whom the fourth was a lady with diabetes. It revealed the unsustainable
pressure that “efficiency” and “targets” have increasingly imposed on the
service. The result for one patient was fatal, and for one operating team
clearly traumatic. The episode ended with him breaking the news to the family:

‘… I wanted to scream to high heaven that it was not my fault that her blood sugar level had
not been checked upon admission, that none of the junior doctors had checked
her over, that the anaesthetists had not realised this. It was not my fault
that we were bringing patients into the hospital in such a hurry that they were
not being properly assessed. I thought of the army of managers who ran the
hospital and their political masters who were no less responsible than I was
and who would all be sleeping comfortably in their beds tonight, perhaps
dreaming of government targets and away days in country house hotels and who
rarely if ever had to talk to patients or their relatives. Why should I have to
shoulder the responsibility for the whole damn hospital like this when I had so
little say in how it is run? Why should I have to apologise? Was it my fault
that the ship was sinking? But I kept these thoughts to myself and told them
how utterly sorry I was that she was going to die and that I had failed to save
her. They listened to me in silence, fighting back their tears. “Thank you,
doctor,” one of them said to me, eventually.’

It happened last night that a group of us were enjoying each
other’s company in my favourite coffee shop, the Cornerstone Café in Grove. We
were talking about the questions we’d like to put to candidates in our local
hustings on 1st June, and I found myself concluding that Labour was
more likely to provide adequately both for health and social care – and more
surprisingly that their financial plans were not as daft as the corporate media
would have us believe. Nationalising utilities does not increase national debt,
in that they become national assets, like a house (or recovering the family silver).
Borrowing for investment when interest rates are at an all-time low makes good
sense. Raising tax revenues from corporations and the wealthiest 5% in society
doesn’t wholly work only if those
firms and individuals decide they don’t want to contribute to the common good
and set about avoiding or evading their share. Sir Andrew’s comment about the
social care proposals is relevant. 'Mr Dilnot said he was “very disappointed” by
the proposals in the manifesto. “Not personally. I feel very disappointed for all
of us – the millions of people who are very, very anxious about this,” he
added.'

I guess that’s what all of us have to decide, captains of
industry, the comfortably off, those with no jobs and those who depend on
benefits and food banks - and everyone in between. Will we care about the millions or will we care just
about ourselves? It’s all too easy to think, “I’m all right, Jack. The rest can
go hang.” The issues are really too important to be reduced to schoolyard name-calling and character assassination.