Monthly Archives: September 2013

I know this for a fact, but can’t disclose my source: The CFIDS Association of America (“CAA”) has contacted at least some, maybe all, of the 35 signatories of the letter addressed to the HHS regarding the adoption of the … Continue reading →

Those of you who have followed the HHS’ CFSAC meetings know that Secretary Sebelius has, through Dr. Lee, CFSAC’s Designated Federal Official, told the patient community and CFSAC time and time again that HHS is not the proper institution to … Continue reading →

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Stop-the-IOM Petition

Please sign the petition at the link below (just copy and paste the link into your browser) urging HHS to abandon the IOM "study" and to adopt the CCC definition. No issue has ever been more crucial to our patient community. Thank you!

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This blog/web site is made available for educational purposes only as well as to give you general information and my opinion of issues surrounding “ME/CFS”, not to provide specific legal or medical advice. By using this blog/web site, you understand that there is no lawyer client relationship between you and me. The blog/web site should not be used as a substitute for competent legal or medical advice from a licensed professional lawyer in your jurisdiction or from a licensed medical professional.