Hi Mbj Glad your nausea was bearable hopefully ours will be on the next one, I cant bear sickness theres nothing worse. Apparantly they start us on the basic meds and increase to the others if needed but dont know until we try. xxx
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Hi Marilyn I had Ondansetron, Dexamethsone, this is a steroid, Metclopramide after ringing the helpline and a visit to the hospital they gave me an anti sicknes injection and Cyclizine but have said that Emend is the best and hopefully that will be prescibed on Monday. I was so dissappointed as I didnt suffer pregnancy morning sickness, this is meant to be an indicator and drank lots of water before. I vomited straight after taking the meds and immediately after the injection. It just makes you feel rubbish doesnt it? I cant believe how well i have felt this week, im pleasantly suprised, Im going to Cardiff for some shopping and lunch with a friend this afternoon and am going to make the most of the next few days before number 2. Lisa xxxx
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Morning MBJ Glad you found the cold cap ok, I managed it ok too but felt like i still had a hat on for days later. I wasnt sure if the headache was from that or from the chemo, I didnt realise we shouldnt take paracetamol I took 2 every four hours and didnt think about temperature oops! I'll mention it on Monday when I go for my review. xxx
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Hi Trixielady My implant feels quite hard and as my scar is going across the middle it feels like a boob of 2 halves, I did joke and wonder if thats what all young boobies felt like and I had forgetten its been so long My youngest has just turned 15, she is very sensible,i have been very open with all 4 of my daughters. She could stay at the house on her own as is old enough but wants to come with me, bless her.xx
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Good morning Marilyn Im glad to hear that you are feeling much better and got a good night sleep. I was given an information folder at the hospital, it says that if your temperature falls below 35.5 you should phone your chemo line for advice. I also vomited non stop from the treatment day Thursday to Monday, thankfully my medication is being changed ready for next Thursday, i really hope it works im already dreading it and was on the verge of not doing it, what anti sickness have you been given? LIsa xxxx
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Morning Trixielady I think we have spoken about this before on another forum, although my brain is foggy! How does your feel? Mine has always felt 'odd' but yesterday and this morning it feels more uncomfortable, the port seems to be jutting out a little bit more. Im wondering if its because the swelling has reduced or that im using my arm/chest muscles more. Im going for my first fill on Wednesday, just 50mls in think. Ive got 3 appoinments at the hospital next week, bad planning for me as it half term next week in Wales and im not sure that its appropriate to take my daughter with me. Also, ive been a regular yoga goer until all this kicked off, i would love to continue but what about all the positions using my very weak incapable arm? Any suggestions off you lovely ladies? Thanks Lisa
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Good morning ladies Ive not been able to post anything for days!🙁 what has been going on? It’s so frustrating typing long messages for them to just disappear 😂 Anyway just to say I’ve caught up with the posts and am so glad everyone is doing ok & I’m loving the photos. Good luck to those starting treatment this week. On a surgery note.... does anyone have an expander implant? Lisa xxx
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Hi Implausible I’ve only just looked at todays messages and want to wish you all the best for tomorrow. It’s an anxious wait I know but when you are there it will go quickly I’m sure. On a positive note I have felt almost ‘back to normal’ since Tuesday last week, a little more tired than usual but apart from that I’ve been out every day even watched my daughter play golf all day yesterday something I didn’t expect to be able to do. I wil be thinking of you tomorrow xxxx
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Hi Trixielady Thankyou, I thought I’d seen it somewhere. I wish I had a list of possible side effects from the various drugs so I haven’t got to go into panic mode all the time. I’ve already rang the chemo line 4 times, they’ll be fed up of me but as you say are brilliant. The paracetamol & ibruprofen have kept the pain bearable for me today but I’m only having 1 injection 24 hours after chemo, hopefully it will be gone tomorrow as I’m taking my daughter to play golf, got to make the most of the sun.🌞 Hope you enjoyed your night out, it is lovely to feel like a normal person, even though I had to ask for changes in the menu because of not being able to eat certain foods 🙁 a well done fillet steak just isn’t the same 😂😘😘
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Hi Daisydi Welcome to the group. I’m having 3 Fec & 3T too. 1st Fec was last Thursday. I was panicking so much before hand, it’s the fear of the unknown isn’t it?, but it all went smoothly. Hope the sun is shining for you this weekend 🌞😘😘
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Hi Implausible I had the one single injection to boost white blood cells 24 hours after chemo. A district nurse came to do mine but they did say I could do it myself if I wanted to. It wasn’t painful and was injected into the tummy, she was able to pinch quite an inch 😂 It does seem to differ, I’m not sure why. The pain has come for me exactly a week later in my back, hips/top of legs but ive found it bearable with paracetamol & ibruprofen.
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Hi Sandraindurham I didn’t find the injections to boost white blood cells painful at all. Mine was given 24 hours after chemo by a district nurse into the stomach, honestly I barely felt it. I only had one but I know some ladies on here have had more than and at different times, I’m not sure why there is a difference. I had mine last Friday and woke up last night with pain in my back & hips/top of legs but it has been manageable with paracetamol & ibrupfen. It’s been a beautiful sunny day today here in Cardiff with the use of the painkillers I went for a walk with my youngest daughter which was lovely. Xxx
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Hi Trixielady I’ve been looking through the forum to find your message about backspin. Day 8 for me and was woken up in the night with bad pain in my back, hips and legs. I went out last night with hubby for a meal & all sorts going through my head, was it something I ate? Oh no was it that 1 glass of wine? So I’m grateful to know that you had it too, thank goodness for this forum. I’ve taken paracetamol but it hasn’t gone, thinking of ibruprofen next?xxxx
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Hi SeasideSar Thankyou 🤞🏻 for the Emend, I’m already dreading next time but have been assured that is the ‘best’ anti sickness meds, I’m not sure until my review appt what else they will give me. I know what you mean about buffets I’m not keen on them at the best of times but will certainly avoid them at the moment. I was thinking pasta or pizza without any salad on the side in case it’s not washed properly 😂 oh gosh so much to think about. Im about to pop to the shops, I want to wear gloves (in case of germs) 😂 & a hat (to cover my greasy unwashed hair) but it’s too warm, oh my goodness how my life has changed! My new accessory is anti bac gel 😂😂 xxx
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