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3 Visitor Messages

Thanks Steve.. I have no idea how to navigate this site.. I am slowly learning.. THANKS again for your post.. I will promise myself to get on this site more often.. and get involved ! Hope everything is well with you and your family and am glad for you, at least now you have a diagnosis... again Thanks for caring. God Bless, Suzy

just popped in to say hi.
i like you have had these problems most of my life. i was born in 61.
unfortunatelly i had to wait until 2 years ago for my diagnosis.

Showing Visitor Messages 1 to 3 of 3

About SuzyFlores

Basic Information

About SuzyFlores

Biography:

I've had Lupus for many years.. Back in 1972 when I was 12 years old I was diagnosed with Sarcoidosis, a Lung disease.. shortly thereafter I had bilateral polyneuphritis, a kidney disease. Fortunately for me My Specialist treated my illness with Chemo. In the 70's Lupus was known as a fatal disease so the diagnosis was not easily given.. Over the years I was diagnosed with Fibromyalgia, RA, an Autoimmune disease and ITP.. all stem from the LUPUS diagnosis... I've been through everything and have been on Plaquenil and Prednisone daily for the last 15 years. People just don't know what it takes to get through the day without these meds and many more... I live in Pain everyday and every minute... I look good, so you don't really think I have such a dreadful disease. BUT I live the pain and the anguish on a daily basis.. It's not easy and as I get older it gets harder and i get immune to certain medications and i've tried everything. All of my operations were caused by the lupus disease. The latest diagnosis was Lupus Sarcoid in my Liver because of the meds, I presume. Please join this cause to raise awareness for this silent disease.. THANK YOU !!

2 Friends

Recent Entries

Hi, I posted on this site several months ago and never got on again.. after reading a few blogs today, i guess i haven't introduced myself.. My name is SUZY and I live in Cocoa, Florida.. I have had Lupus for over 39 years now !! I am 52 and happily married (2x around) to my soulmate.... and raising a second family ! I am guessing this is like Facebook but for people who suffer, we all have this in common.. I'd love to hear from you and chat but i am not so computer savy and don't get on much..But

I've had Lupus for many years.. Back in 1972 when I was 12 years old I was diagnosed with Sarcoidosis, a Lung disease.. shortly thereafter I had bilateral polyneuphritis, a kidney disease. Fortunately for me My Specialist treated my illness with Chemo. In the 70's Lupus was known as a fatal disease so the diagnosis was not easily given.. Over the years I was diagnosed with Fibromyalgia, RA, an Autoimmune disease and ITP.. all stem from the LUPUS diagnosis... I've been through everything and have