Research and medical professionals

Current Events

For PKD researchers

We are the largest private funder of PKD research in the U.S. The scientists we have funded have progressed from identifying mechanisms of cyst formation and growth to conducting clinical trials to test therapies in humans – unprecedented success in biomedical research.

For medical professionals

We are committed to providing resources for medical professionals to educate and empower their patients with PKD to manage and improve their health. To provide medical professionals with in-depth information about various aspects of PKD, we have teamed up with UpToDate, an evidence based, peer reviewed online information resource.

We are the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD to improve the lives of those it affects. Our vision is that one day no one will suffer the full effects of PKD.
Our home: 1001 E. 101st Terrace, Suite 220
Kansas City, MO, 64131