News From Patient Groups

Asthma digital health, what is next? As a huge therapy area, asthma has attracted a large number of poor quality `me too’ apps and poorly implemented digital health activities. But this year there could be a number of breakthroughs in asthma digital health and mHealth, […]

BEST DATA PROTECTION PRACTICE For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will […]

INSIDER’S VIEW OF PHARMA BARRIERS TO APP CREATION In this post we are looking at the insiders view on app creation and barriers. In a recent interview for Eye for Pharma, Sanofi’s Chief Data Officer, Milind Kamkolkar identified some clear reasons why most pharma apps […]

Recent Posts

Asthma digital health, what is next? As a huge therapy area, asthma has attracted a large number of poor quality `me too’ apps and poorly implemented digital health activities. But this year there could be a number of breakthroughs in asthma digital health and mHealth, […]

Study finds: physical activity apps can help change behaviour… A recent study by health science researchers at Brigham Young University (BYU), USA. They found that nearly 60% of respondents strongly agreed that using physical activity apps increased their desire to be healthy. Following on, 56% […]

Mental health apps increase users’ motivation, confidence and control Recent research by Brigham Young University (BYU), USA, found that 90% of users of mental health apps and emotional health apps reported the following; “increased motivation, desire to set goals, confidence, control, and intentions to be mentally […]

Diet and nutrition apps can lead to positive behaviour change, study finds In a recent study of users of diet and nutrition apps, carried out by Brigham Young University (BYU), USA. 96% of respondents reported that using diet or nutrition apps increased their motivation to […]

BEST DATA PROTECTION PRACTICE For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will […]

INSIDER’S VIEW OF PHARMA BARRIERS TO APP CREATION In this post we are looking at the insiders view on app creation and barriers. In a recent interview for Eye for Pharma, Sanofi’s Chief Data Officer, Milind Kamkolkar identified some clear reasons why most pharma apps […]

SMALL PATIENT GROUP LAUNCHES ITP APP WITH NOVARTIS Often, there are lessons to learn from the smallest of patient groups. The UK’s ITP Support Association worked with Novartis to launch a new app for patients with Immune thrombocytopenia. The association: Consulted the patient community on […]

PATIENT VIEW RESEARCH IDENTIFIES PATIENTS’ REASONS TO SHARE DATA – Deloitte Research by PatientView with 190 patient groups worldwide for Deloitte found that patients would be “willing” or “somewhat willing” to share their personal health data from apps if it is guaranteed that: Firstly, the […]

PATIENT VIEW RESEARCH IDENTIFIES LACK OF TRUST IN PHARMA APPS Research by PatientView with 190 patient groups worldwide for Deloitte found that: Only 32% of patient groups surveyed had ‘some’ or ‘high’ trust in health apps from pharma 76% of patient groups had ‘some’ or […]

Mental health patient groups least effective at providing services to patients. Mental health patient groups were the least effective type of patient group at providing services to patients. They dropped from 5th to 10th place (out of 11), according to research carried out by PatientView […]