Friday, July 12, 2013

Take a survey and raise some lupus dough!!

My local chapter of the Lupus Foundation of America will receive a $20 donation for every qualified survey completed. I just took it, and it's an easy one. It takes all of five minutes, and it won't make you think too hard. It is Friday, after all!

I believe there will be follow-up surveys over the course of the following six months, so if you're game, give it a try. Just click here to begin! I kind of enjoyed taking stock of where I am in my lupus disease activity. In going through the questions, I realized that the fatigue I experience on a daily basis really does impede my activity and abilities a little more than I think it does. I act like the two-hour hiatus is no big deal - and I've learned to make it work - but it does hinder my productivity for sure. Maybe that's why I'm always behind on my to-do's!!

You can read more about the survey below:

Help the Lupus Foundation of America, DC/MD/VA Chapter raise funds by taking a quick survey today! Each qualified survey completion will result in a $20.00 donation to our Chapter. This survey will be open for the next 6 days only.

This research study is conducted by researchers in the Department of Medical Social Sciences at Northwestern University (Principal Investigator: Dr. Jin-Shei Lai; IRB STU#: STU79933). The goal is to better understand the symptoms, side effects, and quality of life of people living with systemic lupus erythematosus (SLE).

For this study, individuals with SLE will be asked to complete online surveys over the next 6 months. By repeating the surveys over several months researchers will gain new knowledge on how symptoms and quality of life change over time. This information will help researchers design better therapies for SLE and understand the impact of SLE therapies for patient well-being.

This study is a very unique opportunity to learn more about this disease. It wouldn't be possible without the support of SLE patients. You participation is greatly appreciated!
Note that the above is provided for informational purposes only. This Lupus Foundation of America DC/Maryland/Virginia Chapter is not affiliated with this research.This is an independent study in which the Chapter is not responsible for the survey content or the outcomes of the research. Any questions or concerns please contact Northwestern University.

BUY THE BOOK

Sara Gorman

In 2001, I was diagnosed with systemic lupus, at the age of 26. I had been married less than 6 weeks and was at a highpoint in my career in television production. While I fought to keep hold of the life I'd known - demanding, yet fulfilling career, busy social life, packed vacation schedule - after four years of running my body into the ground, I realized I was fighting life, not living it. Thus, I downshifted almost every aspect of my life. I let go of my career and made it my number one priority to get myself back in good health. I'm proud to say that I've reached my goal, but work each day to maintain that healthy lifestyle. despite lupus. My book details the steps it took to reach that goal. A native of Indiana and graduate of the University of Notre Dame, I reside in Alexandria, Virginia with my husband, two young daughters, and pug dog.