Monday, October 17, 2011

Reagan finally slept last night. She really fought it, she was up til 12:30am or so, but she did sleep through til 11 this morning. She's been a good girl all day today. She still is having the occasional crazy episode of chorea and cold hands and feet, but overall she's been content (and we've even gotten some laughs). I'm exhausted. I've been packing all night. I actually packed the suitcase full and then found out it was 10lbs overweight so I had to divide it up between two bags. What a pain. It's 12:30am right now and we've got to leave here by 6:30am...so I'm going to make this quick. Here's our itinerary for Stanford...

2016 UMDF Energy for Life Walkathon

About Me

On August 21, 2007 (at exactly 5 months old), Reagan had her first cluster of seizures. She was diagnosed at 6 months old with Infantile Spasms and 2 years later with Mitochondrial Disease. Life has been a roller coaster for us and our baby girl but we've been blessed with wonderful friends and family to help us though this!