Lyme Disease Support Group

Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.

Do you have Lyme? How long have you been sick? Are you seeing a Lyme doctor? Have you been tested for the co-infections?

I believe that Samento, or Cat's Claw, is an herb that can help the immune system. Steph Harrod Buhher discusses this herb and many others in his book &quot;Healing Lyme: Natural Healing and PRevention of Lyme Borreliosis and Its Coinfections.&quot;

Hi Sharron. I am sorry you have been sick for so long. How long were you treated initially? It may not have been long enough and/or aggressively enough. It is also possible you were re-infected.

200 mg of Doxy is not strong enough from Lyme. I believe the recommended dose is 300-600 mg daily. There are a few important tips about taking Doxy. Do not have any dairy, magnesium or iron products two hours before or after taking it or it will not be absorbed properly. If it makes you nauseous, eat something substantial and non-dairy before taking it. Avoid the sun. You can get a severe burn in minutes even when wearing sunscreen. Do not lay down for at least an hour after taking it or you can ulcerate your esophagus. This is very painful! Drink a full glass of water when you take it for the same reason.

Whenever you take any antibiotics, make sure you take high-quality acidophilus capsules. They replace the good bacteria in the body and help to prevent yeast overgrowth. The best ones to get are refrigerated. Most healthfood stores have them. Wait at least two hours before or after taking the antibiotics to take the acidophilus.

Below is a Lyme symptom list. You can have any combination of symptoms.

It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Often infectious disease doctors are not the best to see for tick-borne illnesses unless they specialize in Lyme disease. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME &amp; HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?

If you need a doctor recommendation, you can send me a private message or email me at ko_@bellsouth.net

Are you aware of the Jarisch-Herxheimer Reaction (herx)? Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks. You can read about this reaction at:

It is a good idea to document your symptoms daily. One way to do this is to list the three main symptoms you have each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book &quot;Everything You Need To Know About Lyme Disease (2nd edition)&quot; by Karen Vanderhoof-Forschner.

I'm taking Samento as a homeopathic. Is comes in a bottle with an eye dropped to dispense drops into 4 ounces of water. I understand it helps with co-infections and symptoms. My legs muscles and joints always feel better after taking it.

Samento was the only thing in the long list of things that I tried that helped for symptoms of Lyme disease. Had severe arthritis pain in my hips and knees for over 5 years. That went away after about seven months of use. If you’re in the later stages of lime disease, this herbal drop will help draw out The part of this disease that hides in your joints and organs

There are also capsules of it sold through Green Dragon Botanicals in Vermont. Their number is 1-877-591-1874. I have liked and used the LB Core protocol which you can read about on their website" www.GreenDragonBotanicals.com

Hi Everyone,I was diagnosed with Lyme about 8 years ago after about 14 years of being sick. 4 years of intense treatment and I was a functional human being again. It was a surreal feeling to be well again, something I never thought I’d have and honestly, had to re-adjust to. 4 years later...here I am. Leading a “normal” life, dealing with pop-up symptoms here and there but doing well for...

I've been focused on healing. My mental health was being dragged down by alcohol so I'm not drinking alcohol. My sense is that gluten could also be a culprit. Anyone else on here have experience, strength and hope in this area?

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