Hello Krull family. I hope you don't mind but I made a video for your little girl Lucy. I have been following her journey and am amazed by her strength, beauty and courage. I wanted to share her story with the world and spread the word for prayers and support for your family. I pray for your daughter nightly and I know the Lord will put his healing hand upon your little Lu. go Lucy go! Here is the link to the video http://www.youtube.com/watch?v=vA3mLG4jLoY