Connection scheme

The Connections Scheme has been set up to enable our members to make contact with others in similar situations to themselves.

The Society has members from all over the world, and although no two people have the exact same experience, sometimes there are shared difficulties and outcomes. The Society knows the strength of impact that connecting with someone else affected directly or indirectly by encephalitis can have on individuals and families.

This scheme may be able to connect members, helping to relieve feelings of isolation that are felt by many, following encephalitis. Many of our members have benefitted from our similar schemes and we would encourage you to become part of the Encephalitis Society family. The Support Team are always here if you need them!

Related

Team Encephalitis Support Volunteers are people who have personal experience of encephalitis. They have completed the Society's Support Volunteer Training to provide information and a listening ear to people affected by encephalitis and their families.

Most read

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories:
infectious encephalitis and autoimmune encephalitis.

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.

Anti-NMDAR encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.

With increasing numbers of people travelling worldwide and the international spread of viruses (e.g. Zika virus), it is important to highlight the risk of infectious encephalitis and their preventive measures.