Friday, December 11, 2009

Brief Update

My computer has some sort of virus and hasn't been working. For some reason it is working now but it's shaky and I'm expecting it to go out again.

I had the ultrasound Weds and am awaiting a call back from the doctor. The tech said my gallbladder, liver, pancreas, and kidneys looked fine. It doesn't make sense. It hurt when she scanned the gallbladder area. I said "that must be my gallbladder because that hurts.

For some reason I wake up every morning around 5am filled with anxiety. It's very strange and seems to be physiological. My heart is racing etc....I'm not sure what's going on with that.

No news from the WPI. They have been very silent lately which makes me a bit nervous. I wonder what has changed from all the news to silence. I was going to donate some money but have decided to hold off until I learn more info. I'm beginning to wonder if the XMRV was a bit hyped up.

4 comments:

Hi TerriI had the same thing Terri. It may be something else....As far as the anxiety and racing heart at 5 am.....I would say this could be related to Lyme or Bartonella...but yours is gone or in remission, right? This happened to me quite a bit before treatment with Doxy and then again when I started treatment for Bartonella...I even had wild dreams and woke up in the middle of the room....anxiety would come in waves when I first woke up...it went away with treatments. I sure hope that this is not that, Terri and there is some other explanation for you.Hang in there with the tests...Could it be a medication causing this?

Dr.Stuppe, a gastroenterologist in LA, has proposed in papers that there is a connection between panic attacks and the release of metenkephalin from the gallbladder. Your intuition could be right in line.

Ask your natural health practitioner about taking bile salts, some kind of liver support, and something like I3C or DIM to support the hydroxylation of estrogen. You'll get through it :)

I was wondering the same thing that Renee raised, that is whether a medication might be causing your heart to race. I hope you get a satisfactory explanation of why you're sore in the area of the gall bladder. Sometimes it feels like a full-time job to have this illness.

BTW, I paid to have a PCR done for the presence of XMRV as an active infection and test came back negative. But I noticed that the reporting sheet had a disclaimer that said that even though it was negative, it didn't mean I didn't have the virus. So, where has all that left me? The answer may be: $400 poorer.

I do have to admit that, as much as I'd like a concrete diagnosis, I was relieved when the test came back negative (despite the disclaimer).

For years I've had pain in my gall bladder area and up high on the ribs on the right side. I've had many scans and all show normal. One technician suggested it could be inflammation in the intercostal muscles. He said that you were unlikely to get pain from the scan if the organs were a problem. Just a suggestion.Another suggestion is that waking up with racing heart and anxiety could be low blood sugar. I find I can fix it by having a banana. But I'm no doctor.I'm sorry you're having all these problems. CFS is a bit of nightmare isn't it? I send you lots of healing thoughts from across the sea.

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I first became ill in July of 2007. Or at least that's when I started having symptoms that I couldn’t explain away with being too busy, too stressed, not eating enough, not getting enough rest, etc.
In August I passed out while eating in a restaurant. In September I remember climbing some stairs while visiting a museum in SF and feeling a sense of profound fatigue. As I climbed the stairs I thought to myself "it's as if my cells aren't getting enough oxygen"and for a minute worried I might have some sort of leukemia. During lunch I literally had to put my head down to sleep.
By the end of December of 2007 I was housebound due to dizziness, fatigue, cognitive impairment and a myriad of other symptoms.
I'd completed my dissertation in 2006 and awarded my PhD in Jan 07. I'd always been active, athletic, driven.
Imagine my surprise when this all happened. It's been a life changer.
This illness is not for the faint of heart. 20% of people with cfids commit suicide. It's a fact. The illness is that devastating. I used to believe that cancer was the worst thing one could have. I no longer believe that.
Luckily I plan on getting as well as I can with the right help