Blog

Do you like this page?

Join Us

First Name

Last Name

Email

City

State

Zip Code

** To connect you with your Congressional District, please enter your street address below. Your street address will not be visible to the public or used for anything other than determining your Congressional District.**

Street Address

* By clicking 'Submit' you agree to the privacy policy and will be added to our map of champions. Please check your email to activate your account and login.

When Your Medically Complex Child Is Never Really ‘Out of the Woods’

Parenting is hard. There’s so much to worry about. Throw in complex medical conditions and what’s considered “hard” about parenting changes. The things at the forefront of the mind are different for parents of medically complex children. The stresses of parenting a child without medical conditions certainly exist, and they’re real and valid. For parents dealing with medically complex children, those typical worries still exist, but they have to take a back burner to more basic, primal needs that keep the child alive.

The term “medically complex” is a vague umbrella term used to describe a wide range of medical conditions that present unique challenges and require special care on an ongoing basis. There are no official parameters regarding what conditions fall under the umbrella of “medically complex,” but chances are if a child requires ongoing care with a herd of doctors and therapists, he or she is medically complex. Many medically complex children have diagnoses of genetic conditions, diseases of major organs and neurological disorders, and many have a collection of symptoms with no diagnosis.