oblio70

Member Profile

254, Ecto-Mesomorph, INTP, type 5 with a 4 wing...
I am an Architect in the truest sense, because that term has been grossly polluted in Western culture over the past 20 years or so. Career-wise, I have departed seeking more supple shores (ie. Art & Invention).
Father of 3 Girls, the oldest one of whom was born with half a heart, Hypoplastic Left Heart Syndrome (HLHS), later receiving the gift of a transplanted heart at the age of 4 (counting open-heart surgeries by then at 4), only to fail a year later and to be blessed again with a second gift of another Heart Transplant (Stanford University). She lived and thrived with this heart for two more years, only to die suddenly in a routine checkup.
We miss her terribly.

Member Since: August 10, 2006Email: oblio70 at gmail dot comLast Power Points used: neverAvailable: nowPower Points at Recharge: 1 Get More Power Points Now!

...there is a small, ignorant, selfish part of me loudly screaming "FINALLY!" over the easy emotions of this. As a father to a CHD child, I am intimately aware of the extreme complications (outside of the medical ones) such a development presents to a family...maybe let that sink in a bit.

So why do I hold such a callous response? Please believe that my heart is breaking for them even now, but the chance of seeing an opportunity to bring this issue bubble up to the front and ... First, why is this even an issue beyond the Hospital to begin with, and what roles do those outside play in the outcomes? For me, this experience in my own life has been so devastating and yet I am unable to express what it was that happened and how I processed it, while wildly pointing and saying "like that".