Caregivers

Unpaid caregivers play a vital role in the lives of people with MS, but being a caregiver comes with its own set of challenges.

Even the term ‘caregiver’ is difficult. For many people it feels like an awkward and inaccurate way to describe the relationship with a partner, friend or family member who also happens to have MS.

‘Caregiving’ could range from getting the groceries to helping someone with their basic needs. Often caregivers fit these tasks around other responsibilities like work, school, or childcare.

Going from being a partner, family member, friend or child to also being a caregiver can impact your relationship. Talking to other caregivers and getting support from MS or caregivers organisations can help with this.

Caregivers need to be recognised and supported. In-country MS and caregivers’ organisations are often best placed to offer this help.

Culture and circumstance play a huge role in the experience of caregivers. Finances, stigma and social care vary hugely between countries.

We’ve gathered our members’ resources and programmes for caregivers (in various languages) in the links on this page.

Most of our member organisations’ events and programmes are also open to the families of people with MS as well as caregivers.