Pacific Northwest Chapter

Thank you for visiting the Pacific Northwest Chapter of the FSHD Society which officially launched in April 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Our first Walk & Roll to Cure FSHD will take place on Sunday, October 6th, 2019 in Bellevue, WA at the Bellevue Downtown Park. JOIN US! You can register to participate or support the event by making a donation HERE!