95 percent of the medical conditions on the RARE List™ do not have a single FDA approved drug treatment!

As my last blog pointed out, the FDA only approved approximately 21 new drugs last year for ALL diseases combined. Only a handful of new drugs are approved each year for the rare conditions on the RARE List™.

If you, a loved one, a friend or even an acquaintance suffers from one of the rare conditions on the RARE List™, I ask that you take action TODAY and join the 1 Million for RARE™ awareness campaign. If you study rare diseases or are a doctor treating rare diseases or a genetic counselor, please take action and support the campaign. This awareness campaign was created by the Global Genes Project™ and was developed by leading advocates representing various rare diseases so we can combine forces and drive the rare disease agenda.

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