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Posts tagged with: Sma Awareness

What a positive night. Yesterday evening Gwendolyn became an "Honorary Vaquero Captain" at Santa Barbara City College's football practice. The big game and her "official" Vaquero Captain duties will be this Saturday at 5:45 pm, but the coaches, team and cheer squad wanted to meet her ahead of time...

Santa Barbara and its residents have been nothing but embracing since Gwendolyn's diagnosis with SMA. The support we have received goes well beyond our immediate friends and connections in the community. (And our immediate friends and connections have been awesomely A-mazing!) Friends told friends...

Earlier this week the City of Santa Barbara officially declared August as SMA Awareness Month for the third year in a row. The City of Santa Barbara has consistently been supportive of our efforts to end SMA and Mayor Helene Schneider has always been extremely complimentary and enthusiastic about...

Awesome things are happening around the globe for SMA Awareness Month and some are dee-lish. Sweet Amanda Cardoze just celebrated her 1st birthday yesterday. At just one-year-old she is already a warrior -- a big smiling, pool-loving snuggler. Amanda has SMA.

August is SMA awareness month and since you are reading this you probably already have a general idea about this brutal disease and why increasing awareness of it is so necessary. Over the next few weeks we will be asking things of you. We will be challenging you to get more involved. We will...

Awesome news! The state of California has once again declared August as SMA Awareness Month. You may recall the declaration last year, but there is much more to this year's declaration. The proclamation doesn't just pertain to this August. Nope. S.C.R. 43, introduced by our awesome state senator,...

Over the last several years, we haven't shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn's Spinal Muscular...

The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children's accessory storeBeb-e-ssentials,hosted a booth at the festival and made it their mission to increase SMA awareness. You may remember the...

Remember last year when the "Gwennie" duck was plucked from the water out of 1,007 rubber ducks at the Troy Strawberry Festival? Remember how Penny and Melissa from Beb-e-ssentials donated all of the $1,000 winnings to the GSF?Well, they are at it again. And get this -- the City of Troy and the...

Students at Hopkins West Junior High in Minnetonka, Minnesota were asked to select a charity to design a service project around. And they chose Spinal Muscular Atrophy and the Gwendolyn Strong Foundation! But these students didn't...

The Indoor Triathlon hosted by Killer B Fitness was a huge success. Nearly 50 participants sweated it out to support the Gwendolyn Strong Foundation and help end Spinal Muscular Atrophy -- and they had fun doing it. Bob and Lisa Wilcher, owners of Killer B Fitness, planned the entire event and they...

We are so excited about the 2011 Winter Wine Down. Firstly because last year was SO, SO much fun! Secondly, we are beyond thrilled that the Santa Barbara MDA decided to dedicate 100% of ALL proceeds of...

Team Owen Simmons is now 100 runners strong -- 30 of whom are running their first race!!! WOW! WOW! And triple WOW! And this dedicated group of SMA Warriors are motivated and determined to help stomp out Spinal Muscular Atrophy!!!

Today we met with Congresswoman Lois Capps at her Santa Barbara office. We have met with, emailed, and spoken with her Health Aides many times before, but we have never actually met Representative Capps. The first thing you should know is that she is really super nice. (I found myself wanting...

We are honored and humbled to have been selected by the Grand National Roadster Show as one of only two charities that will benefit from proceeds of its unique auction. The auction features artwork created by the best pinstripers in the nation and it will be held at the Pinstripers Reunion on...

The Hope Calendar has been such a success! People love the beautiful images and have been so excited by the response -- making them a cinch to sell. We are now closing out this fantastic fundraiser and so it is the official LAST CALL to order your own. Click here to buy. And for all of those...

We are bowled over by all of the enthusiasm and positive energy being put toward fighting SMA! Runners are signing up left and right and we think it is simply incredible! And we are super excited to learn that the race director of the NB Half and the Friendly Sons of St. Patrick committee are...

Feeling the need to challenge yourself? Wanting to get in shape? Thinking about getting involved in philanthropy? Well, you have a little over two months to prepare -- the New Bedford Half Marathon is calling YOUR name and so is Team GSF!!!