Wednesday, June 11, 2008

Stable disease! (and a guarantee)

After one cycle of Temodar, no new mets, no significant growth of existing tumors -- my disease is stable. We'd like to see shrinkage, obviously, but holding the line is great news at this point and a huge relief. I'd probably write more, but we celebrated the results with a margarita.

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Goofy moment: At the end of the visit, Dr. S's current fellow said, "See you in a month!" I replied, oddly, "I hope so." What I meant was that I didn't want to see him before that because my lung had collapsed or something. But he thought my hope was to be alive in a month, so he said something like, "Oh, you'll be here, I guarantee it."

6 comments:

I am taking a deep breath this am, Big K, after getting home and reading this. Watching 3 beautiful girls experience pure joy in the sun yesterday and being very aware at the same of what other peoples realities are at the very same moment and thinking about your moments in time and what yesterday meant- I am grateful for this day and yesterday and knowing you and yours and if you can call it that the good news of yesterday.When you talk about brave people---- your face and presence come to mind. They've got nothing on you surf boy that you are. You are my great teacher and I hope I can retain these lessons. And about the stuff, don't blow smoke up my ass- you'll ruin the autopsy. I am lucky to know you.

Jack Nicholson also says he doesn't "want to blow smoke up your ass" to Shirley MacLaine way back in Terms of Endearment. She has this very funny little laugh and says, "oohhh, what a relief." But it is odd. Would like to know etymology.

Congratulations on getting to stable conditions and I hope you see shrinkages very soon as well. My wife's ES also seemed to be stable. She has taken 5 AIM cycles along with some alternative diet/therapy. However she has continuous back-pain probably as after-effects of her collapsed lung.

Hey Sachin, I'm glad to hear that you wife is feeling a little better and getting a response to the chemo. I felt a lot of mid-back/shoulder pain with my pneumothoraces, particularly the acute ones. (I'm walking around with a couple pneumos right now, but they are small bubbles in spots where my pleurodesis failed and don't hurt as much.) Are you guys getting any closer to figuring out how to get those lungs back up? Your family is in my thoughts, -SG