Friday, June 8, 2012

Introducing "The Fairy and the Wolf"

I am proud to announce the latest and greatest lupus book on the market - "The Fairy and the Wolf: A Story about Lupus." This is a children's book written by a friend of mine with lupus. She and her co-authors have done an absolutely outstanding job with the book - the illustrations are fabulous, and the text is spot-on. Deirdre insisted on reading it three times in a row once our copy arrived in the mail.

The authors present a very complicated subject in a simple, sweet way so that kids can understand it. Deirdre LOVES the fairy concept - and is slowly getting the idea of what lupus is and how it affects me. In fact, there's a page where the fairy explains a few things that the little boy in the story can do to help his mom who has lupus. It's a perfect spot for me to insert my own personal need, which is, "Be super quiet during nap time so Mommy can get her rest." And it works! She gets (and likes) the fact that there's something she can do to help.

BUY THE BOOK

Sara Gorman

In 2001, I was diagnosed with systemic lupus, at the age of 26. I had been married less than 6 weeks and was at a highpoint in my career in television production. While I fought to keep hold of the life I'd known - demanding, yet fulfilling career, busy social life, packed vacation schedule - after four years of running my body into the ground, I realized I was fighting life, not living it. Thus, I downshifted almost every aspect of my life. I let go of my career and made it my number one priority to get myself back in good health. I'm proud to say that I've reached my goal, but work each day to maintain that healthy lifestyle. despite lupus. My book details the steps it took to reach that goal. A native of Indiana and graduate of the University of Notre Dame, I reside in Alexandria, Virginia with my husband, two young daughters, and pug dog.