SCOPE Summit

President Patricia Wood will participate in a panel discussion on "Partnership with Patient Communities to Get from Data to Clinic” at the Cambridge Healthtech Institute's SCOPE Summit in Miami.

She will be discussing the organization’s role in helping to inform patients about NBIA research and upcoming clinical trials as well as facilitating participation in registries and natural history studies. The organization’s participation in TIRCON will be highlighted as an example of partnership with research institutions and industry to help facilitate research and treatments for NBIA. About 600 participants are expected.