It's just a mix of scientific word put together, and without meaning. I do not know if this fiber disease is real or completly psychosomatic, but one thing is for sure, the complete nonsense that this 2 posters have put in this thread does nothing to add any credibility to this disease.

Hi Patrick; I agree that the scientific community has a great deal to learn. One of the first things we are all taught at med school is to listen to our patients. I do not believe that these intellegent and articulate members of the public with this disease are deluded. They are suffering from a real problem.

As a researcher, I have an opportunity to help, and to date the groups i work with have not found an organisms that has resistance to ozone. Hence my offer to start a trial at our expense.

Some would argue that we need to understand more about the causative agent/organism/what ever in this disease process. But right now we have an oportunity to help, and if we get results, then at least we have a very positive message to send out that we have a possible cure for this disease.

drjulianholmes wrote:Hi Patrick; I agree that the scientific community has a great deal to learn. One of the first things we are all taught at med school is to listen to our patients. I do not believe that these intellegent and articulate members of the public with this disease are deluded. They are suffering from a real problem.

I do not know about fiber diseases. What I have found is that if you go on the net you will find very contradictory reports. And The problem is none of the side seems to be very serious and/or very informed.But I can surely tell you that the posts from Gaiapacha and forum are just a crappy mix of techno babble that do not make any sense, and that do not elp the cause of the people which could be infected by the disease.

drjulianholmes wrote:As a researcher, I have an opportunity to help, and to date the groups i work with have not found an organisms that has resistance to ozone. Hence my offer to start a trial at our expense.

Some would argue that we need to understand more about the causative agent/organism/what ever in this disease process. But right now we have an oportunity to help, and if we get results, then at least we have a very positive message to send out that we have a possible cure for this disease.

As for this, I do agree that if you find something that can relieve those people I would just say go ahead. I wasn't saying anything against your post, I was just complaining about 2 other posts. As a mod I felt tempted to remove them but even if they are nonsense I do not believe in censorship and they do not contravene to any posting rules. Yet I wanted to warn the readers about the dubious nature of their content.

@Patrick
Thank you for pointing that out about those 2 posts. I have the same opion, but there was a thought in my mind that there may be some logic to those posts which i am missing and that they actually make a point regarding the desease

"As a biologist, I firmly believe that when you're dead, you're dead. Except for what you live behind in history. That's the only afterlife" - J. Craig Venter

MrMistery wrote:@PatrickThank you for pointing that out about those 2 posts. I have the same opion, but there was a thought in my mind that there may be some logic to those posts which i am missing and that they actually make a point regarding the desease

To the person who debunked the post could you elaborate as to why the post was unscientific etc. I would really appreciate it as I too am a desperate interloper in your forum. Doctors to a person, (I've seen 7 and a dermatologist) always suggest a stress reaction and dismiss or fail to recognise the physical signs of a medical anomaly. Because of this people like me and the other posters to this forum are expanding our circle; seeking answers, looking to generalists and non medical specialists for clues. And thats why im here. Below is my story, Ive tried to be objective and give what information I have which I hope, may maintain your collective biologistical interest. It's long but i hope its of some value.

The condition originally described by Sabrina at the start of the thread is the same one which I believe I have. For me, the primary symptoms are that my body is permanently covered by small threads and minute black specks and i feel as if im being bitten by something.

To give you some idea of the size, the threads/fibers are virtually invisible to the naked eye but can be seen clearly through a 20x jewellers loop. Not knowing micro measurements id guess an average fiber is approx 1/25 of a cm long although they can get bigger, up to 2-3cm. The black specks would fit maybe two or three on the tip of a small needle. These specks also have a glittering property. they appear as specks of glitter on the skin.

The fibers have reproduced in my car, home and work environment to the point where whenever i move anything in car or home there is a gentle cloud of minute fibres. The fibres seem to be associated with the hair. They wrap themselves around the hair shafts and i suspect get inside the hair shaft. I recently found an eyebrow hair that had a visible teardrop shaped bulge in it. It was not one of the many hair infections that are decribed on the internet.

The condition primarily effects me as classic allergic skin reaction - possibly what a dotor may describe as an allergic hypersensitivity. My experience of skin lesions has been minimal although there is a degree of body acne. I have managed to propogate a couple of lesions, but I'm fairly certain in my case it was caused by manicly experimenting with these hard, itchy, pimples/acne. Although appearing to heal, these lesions have become re-infected a couple of times since. Maybe that in itself constitues a lesion, but to my mind weeping sores fit the description better and fortunately, those i have not experienced. My symptoms (biting, stinging, itching sensations) generally leave no mark although my abdomen and chest exhibit a very slight rash most of the time. The symptoms wax and wane but never completly disappear. I have considered many possibilities as to the cause of this but at best guess would say the variation in symptoms seems to be linked to humidity and perhaps barometric pressure.

The degree of contagiousness (is that a word??!) of this pathogen seems directly related to the amount and level of contact one has with others. For example, casual contact such as sitting near others for a half hour or more will in most cases have them scratching, slapping, pinching and peering. Regular contact at this level seems to cause transfer of the pathogen to other susceptible people. People I come in to contact with less frequently still seem to pick it up, but it takes longer. Intimate contact with other people seems to result in immediate infection.

There has been a study done by, I think, the Ohklahoma Dept of health and initiated at the request of the National (US) Pediculosis (head lice)Association following numerous reports to that organisation of the biting symptoms decribed. The study of 20 patients in the study found that 18 had collombola (springtails) appearing in skin samples taken.
If anyone is interested you can read a complete background to the study at the NPAs site: http://www.headlice.org/news/2004/pr071204.htmand from there follow the link to the complete study. Many people with this condition dont believe they have collombola or have them as a co-infection with a mystery pathogen. I think I'm one of them.

There is a US, New Mexico based doctor called Dr Scwartz who claims to have cultured an organism from the skin of one patient with these symptoms and found what he believes to be a genetically modified form of stenotrophomonas maltophilia - and if the spellings wrong, give me a break will ya! hence the theories about genetic engineering. Read his theory at http://www.healingresearch.org

There is also the theory that these fibers are generated by the body as a defence mechanism against stealth viruses, Unfortunatly the developer of
this theory has had some ethical issues to deal with which may impinge on his credability but the article is here: http://www.s3support.com/members/scient ... lications/ Alternativecellularenergypigmentsmistakenforparasitic.pdf

Thats about it. If you can suggest anything, or even just talk about the subject in your respective scientific communities, myself and many others would be very grateful.

My family is 3 years into this disease - Our symptoms are very real- and yes,even life threatning. I dont know where you read you info but the majority of people who I have heard stories from have never mentioned anything alien except when talking about a physician. I am pretty sure that to get into med school now you must be hard of hearing..

I am also sure that many other suffers are tired of telling their story and not getting any response at all- When these neuro problems set in it is exhausting to get to a doctor - yet have to be sent to numerous specialist who shrug their shoulders and say" I don't know."

I have even gone the psych route only to have them tell me I am not crazy and keep up the fight. When doctors have reoprted to the health department there has been no response- or told they didn't have the resources- After this a physician will pull back because it is just to much for them to handle in private practice.

Anyhow, take alook at my photos for our fibers have grown and have a consistant shape to them- I welcome any response!!!

bugsonthewire wrote:To the person who debunked the post could you elaborate as to why the post was unscientific etc. I would really appreciate it as I too am a desperate interloper in your forum.

As I said I won't elaborate on the disease itself, I am not a physician and you cannot elaborate on internet reports. As for the 2 posts I will try o give a few examples of why they are meaningless From gaia pacha post:

"The micro organism has been fused with a mayor parasitic protozoa, a butterfly(lepidoptera) and a mammal specie"

That's a lot of fusions. Whatever these are supposed to be: chimera organism (beteween procaryote and eucaryote that would something new), gene transfer (but which genes?)

"The fibers constitute protein.
Specks are chitin like polymers.
Fibers represent cell that are most connected to sensing parts like antennea, tongue, feet and wing"

I like this one: so fibers are both cells and proteins...

And this could go on for ever. Almost every paragraph is meaningless. as for forum, ic ould do the same I will just quote this one:
"Cyanobacteria are an inbetween organism representing "a half plant, half animal like micro organism""

And remind that Cyanobacteria are not halfway plat and animal but bacteria without nuclei or organelles, with some chlorophyll.

You got the idea? Just pseudo scientific babble with lots of complicated word but a dubious (to be polite) reasonning behind the few sentences that I can make sense of.

Single cell micro organism will start to act as multi cellular organisms. Communication between species of the same kind as well as different kind is possible.

Multi lineage differentiation is fact.
Its preference for the skin follicle is fact.

The fibers constitute dormant (pseudo apoptotic) quorum sensing micro organisms that gather in the form of a variant most resembling a sensing polymer.
Actually they are cell that most relate to sensors
(this fact does not relate to its quorum sensing)

The colors relate to the wing(pattern) color of lepidoptera.

Fibers consist out of protein tubes.
Agea and quorum sensors like pseudomonas are found on infected persons.

Algea(blue-green) thus cyanobacteria is its base.
One of its mayor properties constitutes an intermediate stage (as contained lysis and sporulation kept together in an agar )
This stage you also could regard as a protoplasm

Its cellulose type character is about one step away from chitin.
Specks are tanned chitin like.
All elements differentiate, including its gel.

Insect cell technology represents proteome and genome research.

The responsible micro organisms are right in front of You but are not considered pathogenic (except that they may be regarded nosocomial)

The fact that all this is the case is also the reason that the spread is beyond control.

Ok, People, thanks for the responses. a few supplementary questions please.

1. to Gaiapacha: where did you get the info? what is your scientific discipline and can you translate your viewpoint into lay persons terms? (with verbs nouns etc)

2. to the biologists on this forum: would you please comment on the scientific accuracy of the following statement by the Morgellons Research Foundation in early September.

" Two primary types of bacteria have been cultured from skin samples of multiple Morgellons patients. The bacteria are of two types; a chain or 2-4 rod-shaped bacilli and tiny, spherical, cocci/diplococci. On solid media the cocci make a hard membrane-like coating over the colony. The liquid culture of bacilli usually contains a very stringy material after a few days of culturing. Some macroscopic fibers have appeared in these cultures, but it is unclear where they are coming from. We are trying to determine whether they are environmental contaminants or a product of the bacteria. It is also possible that the long fibers are nothing more than DNA from the dead bacteria. We are currently performing PCR (to amplify
the microbial DNA) and DNA sequence analysis of both of these isolated bacteria. "

I apoligize for the garble of words I posted and I realize I am not that scientific- but I have documented all the stages and symptoms my poor family has encountered the past 3 years as they are watching their father die and I feel I am somewhere behind him. Both my parents have gone this route too and I have yet to find a physician who is willing to try and connect the dots. I know one fact that the medical system is not able to handle anything like this. Thank you so much for your reply for the only other effort that i have encountered out there is the Morgellons research foundation- For to simply say there is no such thing is lazy.
Anne

You also could state that foreign protein will gradually replace healthy tissue.

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What he is saying, from What I can gather is this is a prion like illness, alzeimers, and the like. Possibly similiar to VCJD. This is madness. I have several reasons for believing this post. first of all I have many pictures of the Tanned chitin like flakes or "specks" this discription is only one that fits what I have seen. Second the brain fog associated with this illness is explained with the amyloidosis explanation. third would be the RAF test my doctor wants done next week. Next I have recieved emails now from several people claiming to be physicians and researchers in the last week asking questions but offering no new information. All I can say people is it looks like the fix is in as to the next large "culling of the population". It also explains why so many world class bio researchers have been murdered or at best died under mysterious conditions in the past few years.. All I can say to any group responsible is that what time I have left I will spend it finding out who let this out of the lab, and make damn sure that if I have to go, then so do those responsible. I repeat what have you people done!!?

Southcity

"First they ignore you...
Then they laugh at you...
Then they fight you...
Then you win." - Mahatma Gandhi