Abstract
Concepts allied to ethnicity are increasingly coming under question as legitimate variables for use in health research. A randomised controlled trial of two ethnicity screening questions for ascertaining risk of ...

This chapter reports on the processes of research in working with support groups for sickle cell anaemia and beta-thalassaemia in conducting community-based surveys of knowledge of these two inherited conditions. The ...

From April 2004, the policy for neonatal screening for sickle cell in England has been to base the screening on universal principles (offer the screening to all new-born babies) rather than selective screening (an attempt ...

The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ...

This paper is concerned with the formation of and processes of changes in professional identities, especially those professional groups associated with the new genetics, be they learned scientific professions, clinicians ...

This paper addresses the educational implications of a study of midwives and senior student midwives knowledge of haemoglobinopathies. Knowledge was assessed from 850 multiple choice questionnaires.
Respondents who had ...

The aim of this study is to begin to assess the awareness and knowledge of
sickle-cell amongst carriers and non-carriers in a screened population of
primarily African-Caribbean descent. A structured questionnaire
containing ...

Different sociologies have a contribution to make in terms of identifying problems with untheorized notions of lay knowledge about genetics. This chapter reviews the insights afforded by different sociological traditions, ...

The new genetics has brought forth concerns that such developments as screening for genetic
diseases will accentuate the oppression of minority ethnic groups [Bradby (1996) Genetics and racism.
In The Troubled Helix: ...

The Department of Health has announced a linked antenatal and neonatal screening programme for haemoglobinopathies by 2004 in a comprehensive national plan for the National Health Service in Britain. In response the National ...

An unexplained death in custody represents an important focal point for public scrutiny of the criminal justice system, especially when excess deaths occur in those of minority ethnic descent. Sickle cell anaemia is a ...

Objectives
To describe understandings that mothers and midwives have of ethnicity. To explore barriers to the successful implementation of ethnicity screening questions for sickle cell/thalassaemia.
Design
Observation ...

This study evaluates a temporary research-based intervention of universal ante-natal screening for sickle cell/thalassaemia in two areas of England of intermediate (1.29 per 10,000) and low (0.18 per 10,0000) expected ...

Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...