I already filled in, but my scanner is broken so I need to get my results scanned in somewhere else

"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil GibranAnxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained

Just received my info from the Mayo clinic and forwarded it on to Dr. Carvalho. If anyone else reads this and is willing to participate, please do! Although, he's going to be busy for the next few days viewing twitching videos

TwitchyDoc wrote:Well, only 2 people participated so far what I have been told (which makes 3 with me) - please, if you can, join this study, most likely we will not have opportunity like that in the future.

I would like to join but, have not done EMG, I have nerv conduct study that is also on leg , would they accept

lifewithbfs: If you have at least the report from neurologist saying that your compaint is fasciculations (or that he noted fasciculations), then you are welcome to join. It is kinda strange to do just NVC - maybe you have had major sensory issues? If you have a video on YT, the better.

For the others: As Matt said, we can do better than just 3 of us. Especially important for tongue twitchers who have not any evidence (meaning literature) that this can be benign - this study should mention it. But we need you!

TwitchyDoc wrote:lifewithbfs: If you have at least the report from neurologist saying that your compaint is fasciculations (or that he noted fasciculations), then you are welcome to join. It is kinda strange to do just NVC - maybe you have had major sensory issues? If you have a video on YT, the better.

For the others: As Matt said, we can do better than just 3 of us. Especially important for tongue twitchers who have not any evidence (meaning literature) that this can be benign - this study should mention it. But we need you!

Yes, I do have more sensory issues, I don't have any Video , has my twitch is very small , hardly any one can see, couple of time I told my PD, to look but he can't see, and just ask me to take muscle relaxer

lifewithbfs: if your twitching is that minimal, why do you even call it BFS? I would say if you do not twitch in at least 3 regions frequently and daily, be happy but this study should be aimed on "severe BFS".

So I assume nobody else will join - this kinda sucks, people are asking for support and when they can do something for the others and medical community, they do nothing.