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Sunday, November 29, 2009

Hannah had a great holiday for once. She had a few moments but they quickly passed and I think she had a great time seeing cousins, aunts and uncles. It was interesting to hear the comments from people that haven't seen her in a while how much she has changed, especially socially. She's going through a streaking stage, and I had hoped we'd get through Thanksgiving without a streak but we didn't. LOL! We're all in the livingroom and Hannah comes in topless. I had to be thankful that it was just her top and not anything else. :) All in all I think she had a great time and for once she was well during the holiday! Thank you LORD!

I started my IV infusion treatments Thursday before last. They told me to take it easy and I thought I had been. Evidentally my easy and theirs are very different because I found myself very sick Wednesday after driving to my brother's from Hillsboro. I felt horrible. I barely made it through Wal-mart with my sister in law to get a few things we needed. I called the nurse and she felt like I was overdoing it and that I needed to take it easy. Thanksgiving day I was totally useless. I didn't do a thing. My poor sister in law did it all. Still I guess being up all day visiting, etc. was too much and on Friday I found myself feeling horrible again. I cried most of the drive home thinking I'd never feel good again. I haven't done a single thing since being home trying to get in as much rest as I could to see if it makes a difference. If I'm not feeling better by tomorrow I'm calling doctor back. I have to take care of my family.

David went to visit Billie's grave while we were in town. I didn't get to go. It really bummed me out. I miss her so much and it's not easier. I really have a new appreciation for people who have lost someone they are so close to. She loved the holiday's. We were laughing the other day because I threw out our Christmas tree last year and she was one to not throw something out until you had a replacement. She'd be giving me an earful about now. LOL! I know she's having the ultimate Christmas celebration today and I have to be happy for her.

In the midst of all of those things we got amazing news yesterday. I'm not free to share it right now but it was news David and I could use and has relieved some of the heaviness David and I have been feeling. We have been visited by angels lately. Help with food and gas money for travel. Hannah had a friend pass on her Strawberry shortcake stuff and someone gave her a basket of goodies too the other day. She's been in hog heaven! I'm just so thankful. I hope eveyone had a great Thanksgiving and you enjoy the holiday festvities leading up to Christmas. Thank you so much for your prayers and support. Please continue to pray for Hannah's health and pray that these treatments will work for me and I won't have to do more than the minimum.

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Hannah & Koolio

Hannah in hospital and Koolio helping her feel better

Hannah's Story

Hannah is a 7 yr old little girl who has epilepsy, autism, mild cerebral palsy, SID, and CLD. She attends school where she is in a special needs classroom. She receives occupational, physical, and speech therapy. Hannah is confined to home a lot due to respiratory illness’s and in the summer due to lack of body temperature control, a side effect of her seizure medication. None of which can keep her down. She's one strong little girl. I think you'll enjoy getting to know her...

Koolio

Email from Koolio...(Hannah's service dog)

Hannah, Yoda here with my friend Koolio who wants to speak with you. He is a pretty cool dude that Koolio and you are so lucky he is going to be your partner!

Hey Hannah,

Koolio here! How are ya girl? I am so excited we are partners! I feel like I already know you because I have been getting to know how you smell. I have been working so very hard to be your best friend and help out when you need me. I want to sleep in your room, and even though I am a guy, well you can play dress up with me if you want to and I am sure I can sit through a tea party or two. Whatever you want to do is fine by me. I am just glad to be with you! Hurry up and come here to Ohio because I am waiting for you! Counting the minutes..... xoxoxoxoxoxo Koolio