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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 22, 2015

Update #2

Just got our first call. The nurse said that Gator has done very well.. It is all timing right now. We wait patiently for things to be ready.

At 10:30 the nurse who was with Alex during his very first open heart came to update us saying that they had made the incision and were carefully trying to disect Alex's old heart away from the scar tissue his body has made from his previous surgeries. A difficult job. But that Alex was tolerating everything well.