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Sunday, August 11, 2013

He smells of peanut butter & speaks a language that only
he understands.We call it dolphin.He's very social...when he's in just the
right mood, with the right amount of people around, the volume of his
surroundings has to be to his pleasing, and the chaos...well that has to be to
his liking as well.Otherwise, he's
out.He is 5 and loves nothing more than
to be naked.I made a chore chart that
only says "pee pee in the potty", 7 times a day, 7 days a week.I'm willing to pay .25 for each chore.Shoot...who am I kidding, I would pay much
more but shh...that's our secret.He has
perfect flip flop feet, but refuses to wear flip flops.Did I mention he smells of peanut butter?

I'm feeling very random & conflicted this
afternoon.My day started off pretty
normal.The boy woke me up at about 5:30
am (his norm), so I flipped on Toy Story & put the pillow over my
head.He crawled around on top of me hooting
& hollering as Woody went about his shenanigans. I'm over it, let’s get
up.We had our usual breakfast of eggs
laced with Prevacid, bananas, and a Nutrigrain bar.I am well aware he's done based on the
flinging of left over banana that just hit me in the head.Speaking of heads...let's shave his!!Dad is home (back up is required)...let's get
this done.My boy does not enjoy the cutting
of the hair.But when the screaming is
done, he's so incredibly handsome.Nothing super exciting happened today...same ol' same ol' stuff.Until I sat down at the computer to see
what's happening in the world (according to MSN).And I came across this...

I'm not even sure where to start.Do I believe there is or ever will be a
"cure" for Down syndrome?I
don't think so.Do I hope that someday
they (scientist) find a way to help give people with Down syndrome a higher quality
of life?Absolutely.As I do for the rest of mankind.This article talks about the possibility of
helping/eliminating heart defects, Alzheimer’s disease, childhood Leukemia...
but with what risks?Jake had heart
issues as an infant, but had open heart surgery & now is a little superman.We are good there.But Alzheimer’s...that scares me.So to say they may have a "cure"
for alzheimer’s in people with Down syndrome...I say bring on the studies.One of my favorite parts of this article,
"If Down syndrome were completely cured, the world would lose something
from the absence of that culture," said Skotko, who has a sister with the
condition. "There is something positive that people with Down syndrome
contribute to the world."

Amen.

He smells of peanut butter, I can't understand him, and he
tends to be fussy around people he doesn't know, we spend a lot of money on
diapers (at 5 years old), and he flings food at me...but the absence of all of
that, in my world...would be unimaginable.

0
comments:

Julie

I’ve always thought of myself as an “average Joe” kind of person. I don’t believe that there is anything about me that makes me stick out in a crowd. I am married, I have a part time job, and the other part time, I stay at home with our two kids. I don’t come from an extremely wealthy family, but we have everything we need, and most of what we want…and we are happy. I try and handle things as they come my way, and try not to sweat the small stuff. I love that my husband thinks I am a total girly girl, my daughter thinks I’m her BFF (for now anyway), and my son giggles when I try and get him to say “Momma”. I love pink, eating olives off my fingers, sleeping, reality tv (the faker the better), and dancing. I’m really learning to love life.

Zach

Zach and I met in 1999, and were married 3 years later. Zach is all man. He likes anything outdoors. Hunting, fishing, camping, hiking...all things he finds fun. He's handy. He roofs, tiles, lays down hard wood floors, paints, and builds things. He cooks & cleans. He's recently become a rock star at piggy tails. I've yet to find anyting he can't do. He is my rock. He is a jungle gym for Gracie, and a big warm pillow for Jake.

Gracie

Gracie Lulu is our little princess. She is funny! She has lots of imaginary friends, and has a great time with them! She loves stuffed animals (espically pink ones), slurpee's, beautiful dresses, Sponge Bob Square Pants (againts our better judgment), her friends and her grandparents. She is very strong willed. I've never met a child that could adapt to life's ups and downs as well as she does. She is beautiful.

Jake

Jakey is my Bubba. He is the kid that will be everyone's friend. He's happy go lucky, always smiling, up for anything. He is a teacher. He LOVES to eat! He said "Da da" first, but signed "mom" first. His smile is infectious. He's grandpa's buddy, and grandma's sweet angel. He's a star & will be something big someday. I haven't found anything he doesn't like...yet.