tag:blogger.com,1999:blog-4327423785358259753.post3601336455367220016..comments2015-08-02T17:14:49.136-04:00Comments on National MS Society Blog: Multiple Sclerosis Symptoms and Winter WeatherNational MS Societyhttp://www.blogger.com/profile/17666706081726295960noreply@blogger.comBlogger56125tag:blogger.com,1999:blog-4327423785358259753.post-41769876619623257882013-01-29T18:51:40.167-05:002013-01-29T18:51:40.167-05:00How much Vitamin D3 you take? I take 40000UI per ...How much Vitamin D3 you take? I take 40000UI per day...Raquel Maiahttp://www.blogger.com/profile/04882813463232517130noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-42366599017123037112013-01-28T11:55:55.390-05:002013-01-28T11:55:55.390-05:00i was just diagnosed this past year in august of 2...i was just diagnosed this past year in august of 2012.....so this is my first winter with MS living in NY....does anyone experience intense and severe bone pains apart for the spasticity?jellyhttps://openid.aol.com/opaque/91aefa16-696b-11e2-9b39-000bcdcb8a73noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-3733240199926014702013-01-24T02:10:05.311-05:002013-01-24T02:10:05.311-05:00Very informative and helpful post.
Thanks for shar...Very informative and helpful post.<br />Thanks for sharing.<br />Try comfy <a href="http://www.gotapparel.com/st-comfort-color-nice-pants.aspx" rel="nofollow">comfort color nice pants</a> to stay warm in winter.ashely millarhttp://www.blogger.com/profile/06369674708004243226noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-5096096306768897042013-01-11T11:56:53.419-05:002013-01-11T11:56:53.419-05:00my ms prefers the heat than the cold.I can barely ...my ms prefers the heat than the cold.I can barely walk in winter and have pain.Dave Markshttp://www.blogger.com/profile/14474011560751562661noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-1875781796174190612013-01-11T11:12:53.664-05:002013-01-11T11:12:53.664-05:00My wife has MS since january 2007! Through a lot o...My wife has MS since january 2007! Through a lot of hospitalisations, we discover that cold could be the friend off MS! Not with Laurence! She prefers warm, but not only warm, either less humidity (10 - 20%)<br />We discover that our holidays in Egypt, Kenya and South France were great holidays for her!<br />Less spasticity, less tiredness, more memory, more concentration!<br />In Egypt, temperature was about 20-35 °C but humidity under 20%!! <br />In Kenya, the same!<br />In SOuth off France, about 30 °C and 20-35 % humidity! <br />That give better results for her than cold!<br /><br />We almost decide to leave our beautiful country (Belgium) when I finish with my work and go live in the south of France! We hope so that she gets better and better!<br />Laurence.Didier Ergohttp://www.blogger.com/profile/06678800707145705832noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-44467024806313888632013-01-11T05:58:15.295-05:002013-01-11T05:58:15.295-05:00Agree with u. It takes longer for my limbs to warm...Agree with u. It takes longer for my limbs to warm up in the cold but it&#39;s still better than being stuck in a wheelchair.MSerhttp://www.blogger.com/profile/06950104830635146624noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-69270458556186019202013-01-11T05:54:35.201-05:002013-01-11T05:54:35.201-05:00Same as me! The cold helps me move around too. Yes...Same as me! The cold helps me move around too. Yes it takes longer for me to warm up due to the cold but i prefer shivering n my legs functioning rather than being stuck in a wheelchair.MSerhttp://www.blogger.com/profile/06950104830635146624noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-14670892172964608262013-01-08T10:24:07.009-05:002013-01-08T10:24:07.009-05:00I live in Wisconsin,ugh, it is the cold that reall...I live in Wisconsin,ugh, it is the cold that really exacerbates my symptoms of MS. The spasticity, the pain, OMG! Heat really doesn&#39;t bother me that much, unless it&#39;s over 100. We had weeks of that last summer, that bothered me some, but not as much as the cold does. I wonder if it because I am hypothyroid, with only half a thyroid? I think that because my body temp &quot;normal&quot; has been about 97.2 (has all my life)is why I have a higher heat tolerance. I think I need a tropical climate to live in.Connie Beckmanhttp://www.blogger.com/profile/00170862343169539501noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-13416797527808690802012-12-26T12:12:33.149-05:002012-12-26T12:12:33.149-05:00I have pretty much the exact same thing - only som...I have pretty much the exact same thing - only sometimes they actually are cold to the touch and turn purple. Dx in 2002 with MS and in 2012 with Reynaud&#39;s, tho this Rhuematologist is positive I&#39;ve had it for *many* years. Unfort. there&#39;s no real treatment other than stay warmJenna Sebraskyhttp://www.blogger.com/profile/07960518688896906656noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-4127563306078784852012-12-21T10:39:31.653-05:002012-12-21T10:39:31.653-05:00Very helpful post the cold temps definitely make m...Very helpful post the cold temps definitely make my symptoms worst! Katrina Andersonhttp://www.blogger.com/profile/01217495245793382627noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-16044269818652243472012-12-21T10:36:03.391-05:002012-12-21T10:36:03.391-05:00part of my problem is that when it gets cold outsi...part of my problem is that when it gets cold outside the family cranks up the heat in the house and I feel like I am suffocating.karen rareyhttp://www.blogger.com/profile/11916141273334137238noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-27616761518619096902012-12-19T12:03:03.629-05:002012-12-19T12:03:03.629-05:00I agree with some of my northern friend about the ...I agree with some of my northern friend about the cold weather. Guess there is to much Swedish blood traversing my veins because the cold weather feels great. I am a photographer who has been compiling cityscapes. My photo season starts around the 1st of October. <br /><br />Last week we had mid 40&#39;s and sunshine. It was wonderful (as were my photos). Now a caveat, I live in Ohio and winters are generally damp and cold. That makes everyone miserable, both MS&#39;ers and those whom we consider normal. I lived in Minnesota for 20 years and would return in a heartbeat if I could because the winters are colder, but oh so much nicer because of the sunshine and lack of heavy moister. <br />People tend to be happier and very active in the Northern lands. Ohio, we just count the days until spring, then count the days before fall. <br /><br />I also think winter comfort has a lot to do with one&#39;s heritage. My African-American friends dread the winter. I can not tolerate the hot Ohio weather. This gal is just about ready to put the thumb out to hitch hike but I rather think nobody would pick up a, uh-hum, older lady in a powerchair. Merry Christmas to all my MS friends.Just call me Shellyhttp://www.blogger.com/profile/04695036328983073870noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-17474136224554259862012-12-18T12:50:53.411-05:002012-12-18T12:50:53.411-05:00My MS only bothers me in extreme heat, the cold do...My MS only bothers me in extreme heat, the cold doesnt bother me at all, i recently moved from Idaho to Alaska and it has been really cold here and it hasnt bothered my MS at all, as a matter of fact i have been taking walks with my dog in it lol. Its the shorter days that really have me depressed but i bought a happy light lol and that is what there called. It&#39;s a UV lamp that has two settings on it, partial sun and full sun and it really helps with depression :)Andrea Handleyhttp://www.blogger.com/profile/05870679306163300141noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-68714774479265227912012-10-25T21:53:27.099-04:002012-10-25T21:53:27.099-04:00Wow! I always thought my narrow window of temperat...Wow! I always thought my narrow window of temperature comfort was &quot;all in my head!&quot; Thanks for the info and the validation that MS does affect my body in both temperature directions!Jessica Bruyerehttp://www.blogger.com/profile/14534063603675357730noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-13007497738451023742012-10-25T18:27:46.439-04:002012-10-25T18:27:46.439-04:00My history is both warm and cold exacerbates spast...My history is both warm and cold exacerbates spasticity. Cold never affected me until 20 yrs after DX. Heat graduated from onset in intensity.<br />has anyone found any supplements good to reduce symptoms prior to going out? I do use vitamin D3 already, live in MinnesotaHMZhttp://www.blogger.com/profile/12215489219311014089noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-79398364061952424792012-10-25T18:10:54.736-04:002012-10-25T18:10:54.736-04:00ernie I have degeneratif artherites in the civica...ernie I have degeneratif artherites in the civical spian, the cold kills me the heat above 80 makes me week but cold I can bearly move do to pain. I&#39;am 62 years old. Ernst Saracinohttp://www.blogger.com/profile/10776742599679393909noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-41906058009830758482012-10-09T14:59:41.079-04:002012-10-09T14:59:41.079-04:00I do ok in summer in WI if I am dressed properly f...I do ok in summer in WI if I am dressed properly for the heat. Winter is tough. As soon as it gets somewhat cold outside (below 50 degrees), I start to have problems. After 4 PM, even when I am in a warm house, my legs from the knees down feel like they are encased in ice. I have to wear long wool socks and often have to go to bed with many covers and an electric blanket inorder not to feel like I am freezing. Fortunately, I&#39;m able to go to AZ for Dec. through May.Patriciahttp://www.blogger.com/profile/02016559186539696797noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-23033160691902903842012-10-09T12:48:01.365-04:002012-10-09T12:48:01.365-04:00Very similar symptoms. You are not alone, and dia...Very similar symptoms. You are not alone, and diagnosed same time.WHEN GOD SAYS WAIThttp://www.blogger.com/profile/14280134465303013221noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-12706809342617128032012-09-18T01:55:30.306-04:002012-09-18T01:55:30.306-04:00While some MS patients who have had the liberation...While some MS patients who have had the liberation therapy are reporting long-term benefits from having the procedure, there are just as many for whom the ‘liberation therapy’ has failed as an effective therapeutic intervention. This doesn’t mean that these patients didn’t have some immediate benefits once the neck veins were opened; most did, but over time the veins restenosed again and their MS symptoms returned. In fact, having seen their MS symptoms almost totally disappear however briefly once their veins were cleared, patients who have restenosed want it done over again, as many times as necessary in some cases. However, there is now a new and growing subset of MS patients who have had vein widening venoplasty multiple times, usually to less beneficial effect each time, leading to the later discovery of so much intraluminal scar tissue by the second, third, or fourth attempt at re-opening the veins that the procedure cannot be performed again.For more information on the combination therapy protocol and study email to apply@ccsviclinic.ca or call 888-468-1554. http://www.ccsviclinic.ca/?p=1071<br />http://www.youtube.com/watch?v=ysFiW26MHfQ&amp;feature=player_embedded#t=0sJames Bostromhttp://www.blogger.com/profile/15743441812482775967noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-26540657045980289382012-08-03T07:01:30.715-04:002012-08-03T07:01:30.715-04:00xperts used to think that exercise would increase ...xperts used to think that exercise would increase fatigue in MS patients, but recent data suggest just the opposite. Regular activity increases energy and improves mood. And it actually plays a neuroprotective role in the brain, staving off some MS-related damage. MS, 85 percent said that exercise had a positive impact on their lives. If you&#39;re currently not able to work out the way you once did, that&#39;s okay; the main thing is to move as much and as often as you can. <br /><a href="http://www.whatismultiplesclerosis.in/tag/sclerosis-multiple/" rel="nofollow">Linda Thomas</a>jaikanthttp://www.blogger.com/profile/18191559892700790545noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-73256796305570278362012-05-29T07:48:55.348-04:002012-05-29T07:48:55.348-04:00David Summers, a 37 year old MS patient from Murfr...David Summers, a 37 year old MS patient from Murfreesboro, Tennessee was a score of 8.0 on the Expanded Disability Status Scale (EDSS) when he had the Combination Liberation Therapy and Stem Cell Transplantation at CCSVI Clinic in March of 2012. Having been diagnosed in 1996 he had been in a wheelchair for the past decade without any sensation below the waist or use of his legs.<br />“It was late 2011 and I didn’t have much future to look forward to” says David. “My MS was getting more progressive and ravaging my body. I was diagnosed as an 8.0 on the EDSS scale; 1 being mild symptoms, 10 being death. There were many new lesions on my optic nerves, in my brain and on my spinal cord. My neurologist just told me: ‘be prepared to deteriorate’. I knew that he was telling me I didn’t have much time left, or at least not much with any quality.” David had previously sought out the liberation therapy in 2010 and had it done in a clinic in Duluth Georgia. “The Interventional Radiologist who did it told me that 50% of all MS patients who have the jugular vein-clearing therapy eventually restenose. I didn’t believe that would happen to me if I could get it done. But I have had MS for 16 years and apparently my veins were pretty twisted up”. Within 90 days, David’s veins had narrowed again, and worse, they were now blocked in even more places than before his procedure.<br />“I was so happy after my original procedure in 2010. I immediately lost all of the typical symptoms of MS. The cog fog disappeared, my speech came back, the vision in my right eye improved, I was able to regulate my body temperature again, and some of the sensation in my hands came back. But as much as I wanted to believe I felt something, there was nothing below the waist. I kind of knew that I wouldn’t get anything back in my legs. There was just way too much nerve damage now”. But any improvements felt by David lasted for just a few months.<br />After his relapse, David and his family were frustrated but undaunted. They had seen what opening the jugular veins could do to improve him. Because the veins had closed so quickly after his liberation procedure, they considered another clinic that advocated stent implants to keep the veins open, but upon doing their due diligence, they decided it was just too risky. They kept on searching the many CCSVI information sites that were cropping up on the Internet for something that offered more hope. Finding a suitable treatment, especially where there was no known cure for the disease was also a race against time. David was still suffering new attacks and was definitely deteriorating. Then David’s mother Janice began reading some patient blogs about a Clinic that was offering both the liberation therapy and adult autologous stem cell injections in a series of procedures during a hospital stay. “These patients were reporting a ‘full recovery’ of their neurodegenerative deficits” says Janice, “I hadn’t seen anything like that anywhere else”. She contacted CCSVI Clinic in late 2011 and after a succession of calls with the researchers and surgeons they decided in favor of the combination therapies.For more information please visit http://www.ccsviclinic.ca/?p=904Leo Voiseyhttp://www.blogger.com/profile/05015000718561799923noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-35716862265176903582012-05-22T21:20:22.101-04:002012-05-22T21:20:22.101-04:00My mother has MS and I believe one of her half-sis...My mother has MS and I believe one of her half-sisters from her dad (different mom) had it as well. I was reading this blog because of her. But the MS hug quite honestly has me freaked out. Very recently, perhaps the past 6 months, I get this horrible tightening sensation in my chest and can barely breath. I was convinced I was having a heart attack and called an ambulance. Absolutely nothing wrong.LenoreLuvsSqueehttp://openid.aol.com/lenoreluvssqueenoreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-52586178764832470362012-05-22T21:20:01.962-04:002012-05-22T21:20:01.962-04:00My mother has MS and I believe one of her half-sis...My mother has MS and I believe one of her half-sisters from her dad (different mom) had it as well. I was reading this blog because of her. But the MS hug quite honestly has me freaked out. Very recently, perhaps the past 6 months, I get this horrible tightening sensation in my chest and can barely breath. I was convinced I was having a heart attack and called an ambulance. Absolutely nothing wrong. Is there a genetic component? Did the &quot;hug&quot; start with the onset of symptoms or is it a later development? I also get this weird thing where it hurts to touch my skin and this weird buzzy feeling in my arms and the back of my head. I know I perhaps shouldn&#39;t be asking this stuff to people really going through it, but I get paranoid. Thanks.LenoreLuvsSqueehttp://openid.aol.com/lenoreluvssqueenoreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-37917386039334569492012-05-05T02:07:47.990-04:002012-05-05T02:07:47.990-04:00I was diagnosed in October of 2010 but was always ...I was diagnosed in October of 2010 but was always told that I may have Chromes disease until I moved to Arizona where I ended up hospitalized. I have problems dealing with the Arizona heat and I feel that Spring and Fall are the best times for me. (I cant deal with the cold either) Sometimes I feel lost and don&#39;t really know what to do or where to live. I just want to feel better. I was told that in a sense, MS is a Rich Mans disease because you have to move to what ever climate that is comfortable for you at the time!! That takes money!!research1http://www.blogger.com/profile/05775531480500452347noreply@blogger.comtag:blogger.com,1999:blog-4327423785358259753.post-79068321520738519092012-04-01T18:12:31.207-04:002012-04-01T18:12:31.207-04:00In Michigan, we had a weird heat wave 2 weeks ago,...In Michigan, we had a weird heat wave 2 weeks ago,it was close to 80. One day when I went to the gbrocery store, I could barely walk back to my car, even pushing the cart. Struggled bringing the groceries into the house and then putting them away, took 2hrs for the whole ordeal.Yofeehttp://www.blogger.com/profile/15862841464994024481noreply@blogger.com