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AGM 2019

The 2019 AGM is booked for Friday April 12th in thestudio, 67 Hope Street, GLASGOW G2 6AE. Room booked is the "climb" on 9th Floor (lift available). Speakers are Kate Gilbert PhD author of Polymyalgia and Giant Cell Arteritis: a survival guide and Mayrine Fraser, Scottish National Development Manager for The National Osteoporosis Society.

The timetable is:

12:00 Assemble

12:30 Lunch

13:30 AGM,

14:00 Talks by Kate Gilbert PhD and Mayrine Fraser,.

15:30 Questions, Tea/Coffee and informal discussions

16:30 Depart

If you wish to attend then please book by using the Eventbrite link below:

TOCILIZUMAB latest news...

The SMC (Scottish Medical Consortium) announced on Monday 10th September 2018, their approval for the use of tocilizumab (RoActemra®) for restricted use within NHSScotland. This drug may be used in the treatment of Giant Cell Arteritis (GCA) in adult patients subject to a 12 month clinical stopping rule.

This is the first new drug for GCA since steroids were first used 70 years ago. Thousands of patients have had no option up to now but to take high doses of steroids for several years.

The relevant Detailed Advice Document can be found here and a link to the Decision Explained public information summary can be found here.

The charity has been thanked for the considerable time and effort taken to capture the patient and carer perspective during the submission process. We particularly thank Lorna for all her efforts and we welcome this decision.

VIDEO CHANNEL

Headaches may mean your sight is at risk. See the entry for Giant Cell Arteritis on the page 'What is PMR and what is GCA?' for more information and the warning symptoms.

UPCOMING EVENTS

We aren't aware of anything at the moment but if you know of something that would be of interest to our members or readers of this website, please email us at info.scotland@pmrandgca.org.uk.

FUNDRAISING!!

Do you have family or friends who are prepared to share their talents and raise funds for the charity so that we can both continue and expand our work? Maybe they are part of a community choir or orchestra or band? Perhaps they would like to skydive or undertake a challenging walk and wanted a cause?

Please do ask around and see if anyone is prepared to help. We can provide some publicity material and sponsorship forms if needed.

I regret that we are not currently set up for Charity Choice to collect Gift Aid on our behalf but if you are a taxpayer and are happy to apply this to your donation, click the link GIFT AID FORMwhich can then be posted to us at 7 Hamilton Place, PERTH PH1 1BB.

The small print

The purpose of this website is to share and learn from others' experiences and to publicise sources of information and help. By raising awareness of this much neglected group of sufferers we hope to give research some momentum and to increase the understanding of others and of other disciplines in the medical profession. Support Groups provide hope as well as support and encouragement. There are several Support Groups in the UK. Full details are on the PMR-GCA Scotland/Support Groups and Other PMR&GCA Charities and Groups pages.
The downloadable files available from this website are provided in good faith. PMR-GCA Scotland takes no responsibility for any issues arising from the use of the information contained. If in doubt please contact us. Any information you provide to us is held strictly in accordance with the Data Protection Act 1998.