No. 1. January/February 2018 LifelineLetter Issue

The symptoms of gastroparesis (Gp) are many and varied; they may be recurrent or chronic. Dr. Abell writes, “I’ve been impressed at how little we know about Gp, as well as how much patients are able to tell us, if we’ll just listen.” Read on to learn more about Gp and the options for therapy.

To say the shortages of IV fluids is a multifaceted problem is an understatement. To understand what has been done to address the shortages and where things stand now, we looked to the FDA, and to Baxter, whose manufacturing facilities in Puerto Rico were affected by Hurricane Maria in the fall of 2017.

No. 2. March/April 2018 LifelineLetter Issue

Traveling with home parenteral nutrition (HPN) can be a challenge, however, medically stable consumers should not be discouraged. It can certainly be done with advanced planning and assurance that your insurance coverage will continue.

No. 3. May/June 2018 LifelineLetter Issue

Use of Telemedicine with HPN Consumers: This is a brief review of the equipment and processes we have found essential to our effective use of telehealth (also referred to as telemedicine) distance health care across our two decades of clinical trials, supported by the National Institutes of Health (NIH). Clinic appointments via telehealth incorporate unique discussion opportunities between an individual nurse or physician from his or her office and a patient from home.

Three Oley members have generously offered to share their experiences and answer your questions in a new column. Fran, Mallory, Michelle, and Oley staff hope you will share your experiences, too, and your questions. We welcome guest authors, questions, and suggested topics!

Prize winning research on:• "Central Venous Catheters for Home Parenteral Nutrition: Characteristics and Outcomes of Devices in Place for Five Years or Greater" by Marianne Opilla, RN, BSN, CNSC• "Catheter-Related Bloodstream Infections in Patients with Intestinal Failure Dependent on Home Parenteral Nutrition: Evaluation of a Catheter-Salvage Strategy" by Siri Tribler, MD• "Repair of Damaged Central Venous Catheters Is Safe and Substantially Prolongs Catheter Survival in Patients on Home Parenteral Nutrition" by Yannick Wouters, MD

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

Updated in 2015 with a generous grant from Shire, Inc.

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.