Labels

Wednesday, May 8, 2013

Newsletter - Peutz-Jeghers Syndrome & Juvenile Polyposis Syndrome

OUTDATED!FOR ARCHIVE ONLY!May 2013

These
resources are especially for those interested in PJS & JPS - the diagnosed,
their friends, families, and health professionals. Please share this with any
and all. A list of Online Support Groups for people interested in inherited
cancer syndromes is at bottom of this email.

Warmest
healing wishes,

Stephanie
Sugars

pj4steph@aol.com

Jump to Newsletter

*****

INFORMATION
AND NEWS

* The fifth
Peutz-Jeghers Syndrome Meet & Greet was held on July 27,
2013 in Texas.

* A PJS information day was held in the
Erasmus MC in Rotterdam on 8 June, 2013.

* The
fourth Peutz-Jeghers Syndrome Meet & Greet was held in July 2012 in
Pennsylvania.

* The third
Peutz-Jeghers Syndrome Meet & Greet was held in Denver, Colorado

* 2009 PJS
in the news. This story is about mice, not people. And no, these drugs aren't
currently available to PJS human patients, though there was a small trial of
them in Utah . And the suggested FDG-PET scans for screening have several
drawbacks including accuracy, expense & radiation exposure. Still, it's
interesting that mouse PJS polyps show increased glucose metabolism. The PJS
gene LKB1 affects both metabolism and cancer risk. Press release: http://www.eurekalert.org/pub_releases/2009-06/si-hc061209.php