I am sorry, but I have to say this again. They are not true hemangiomas if they appear in adulthood. They are a type of malformation. You many be hearing this from doctors that are not using accurate update terminlogy. I would encourage you to email any of our specialists and confirm. The problem when doctors use the incorrect term... a patient may be confused by the expectations or treatment options for the lesion.

my name is juan and im 25 when i was born i had hemangioma and i had cirgury when i was 4 but after a year it my hemangioma grow more bigger and now i'm 25 and i still have it and i havent found anything to treated completely the only thing i had done that doctors said it was my only choice was a treatment called sclerotherapy wich they inject alcohol into the hemangioma and afeter a while it reduses the size of it my hemangioma is pretty big its on my neck and chick and on the back of one of my ears and when i do excersise it gets bigger too and hard but i'm guessing for smaller hemangiomas the sclerotherapy would work good and maybe cure it completely if u want more info on the treatment and my doctor email me at toromember2008@live.com and sorry about my writing is not good jeje and if anyone knows about any other possible treatment let me know too thanks

There seems to be a train of thought that pregnancy can stimulate development of AVM's, but I am struggling to find much research on this. I have a lump on my foot that has been developing over the last 5ish years, that has been recently diagnosed as an AVM/hemangioma. I was wondering what kick started its growth, I am 32 so well past puberty and have never been pregnant. It dawned on me that I started taking my current pill (Yasmin) around the same time. I have been other pills for many years, but Yasmin is a very high dose of drospirenone (synthetic oestrogen I think) which I take to help acne. When I look into side-effects of Yasmin, there are concerns about hepatic AVMs but no mention of development elsewhere.
Rondosa, it s interesting you mention polycystic ovaries - as this would suggest abnormal hormone levels. Do you notice that fluctuation in size has any correlation with your menstrual cycle?
As a baby, I had a very large hemangioma on my right calf. This lump is on my left foot. I wonder if there is a link? Am I likely to discover others as I get older? Again, I can find little research on multiple incidences.

Interesting stuff - I would like to know if I should stop taking my pill, my lump is gradually getting bigger... I doubt my GP would have the faintest idea, he initially told me it was hard skin.

I just found this forum. My name is John I was born with a hemangioma that was half size of my body. Although the mass was removed thru several surgies. I still have break outs now and again. As of right now I am scheduled for another surgergy. this will be surgery #21 for me.

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