Category Archives: College of Education

Our entire environment is built upon assumptions about how someone is supposed to move and interact with/in the world. Although disability studies have been around for a long time, in recent years the field has distanced itself from the medical model of disability, in which people with disabilities are viewed as flawed and in need of cure, instead towards a social model of disability. In the social model of disability, an individual in a wheelchair is not the problem; rather, the problem is the building without a ramp and automatic doors. As a 2nd year PhD student of Dr. Patty Duncan in the Women, Gender, and Sexuality Studies Program at OSU, Lzz Johnk pursues questions posed by Mad Studies scholars, such as, what does it mean to think of Mad, neuroqueer, neurodivergent, and mentally disabled people as self-organizing political agents, instead of individuals who society must deal with to maintain order? The core of Lzz’s research consists of applying a genealogical lens to the root of Mad Studies, which is a field examining the lived experiences and culture surrounding individuals identifying as mentally ill, neurodiverse, mentally disabled, and/or Mad. From a white-dominated, Amerocentric perspective, Mad Studies has been around for ~10 years, although the field actually goes back much further, with its roots in the perspectives of people of color, and more specifically, women of color. Lzz explains, “we need to interrogate who gets to decide what constitutes Mad Studies.”

Framing the history of Mad Studies

Examining and interrogating the history of Mad Studies requires understanding the relationships within that history. The location and history of the institution provides framework for the context of the research being done within, as institutions are saturated in the history of the land. Specifically, what does it mean for a white, European settler at a land grant institution such as OSU to be working and researching in a field steeped in the lived experiences of Indigenous people and people of color? Much of the work being done in Mad Studies is limited to the perspectives of cis-masculine individuals and ignores the work of marginalized peoples.

We are all stigmatized to varying extents based on components of our identities, be it national identity, religion, gender, or social class, which is conceptually encompassed by a theory forwarded by Black and other feminists of colour known as intersectionality. The degree to which these stigmas overlap and compound, can effectively result in more acute and damaging marginalization. Historically, people of color and femme and/or gender-deviant people have been hyper-diagnosed as Mad (think of the stereotype of hysteria applied to women). As an example, in considering borderline personality disorder as discussed by writer Susanna Kaysen, Lzz asks, “where is the border-line? Why do women cross that line so often? That line has historically been set and upheld by white settler cis-masculine doctors who determine the boundaries of Madness and wellness. But, the closer you look at the line, the harder it is to define.”

Implementing change

One reason Lzz cites as motivation to return to the academy is to be part of the conversation to make real change in the lives of people identifying as Mad. Changes are being implemented at an unacceptably slow rate. However, Lzz’s research is not directly associated with generating tailored recommendations about health, and explains, “we should be really cautious about the people and institutions making recommendations, by asking what community they are coming from and what their intentions might be. The tendency of entire fields to broad-brush people, and to distill people’s identities into crude stereotypes that get turned against them in moments of vulnerability – as if it is remotely possible to categorize an individual’s whole life experience – is one reason why Mad and disabled people are so stigmatized in our culture.”

Lzz cites the work of Gloria Anzaldúa, a Chicana feminist, as being a critical influence on their wanting to pursue the study of Madness. Anzaldúa wrote and theorized mind-body differences embodying what gets pathologized as Madness or disability. Lzz relates how the work of Anzaldúa exposed them to the concept of navigating overlapping interstitial spaces – or “the space between things, where things don’t fit; falling between, but not quite fitting into binary systems of identity, such as gender.” In this sense, Mad and disabled people are continually finding ourselves in ambiguous terrain.

Why OSU?

Lzz completed their undergrad at Michigan State University in Cultural Anthropology with a certificate in Asian Studies, followed by completion of an MA at Eastern Michigan University in Women and Gender Studies. Lzz felt they could handle doctoral-level work, and also felt strongly that the institution they ended up pursuing a PhD at would need to embrace their Madness. About OSU, Lzz says, “the faculty in my program, in all of their various subfields, are really stellar. Even faculty who don’t necessarily position themselves within Mad Studies are supportive.”

Future directions

Lzz loves teaching and research and would like to pursue these endeavors after graduate school. They also enjoy community work and plan to be involved in outreach to young people who might need support in navigating their neuroqueerness, Madness, and/or mental illness. As someone who has experienced violent pathologization firsthand – fostering a sense of self-hatred instead of acceptance and celebration – Lzz feels that teaching can be one way to disrupt those violences and impact people’s lives in a tangible and meaningful way.

You will not want to miss our interview with Lzz on Sunday, September 16th at 7pm. Listen live on KBVR Corvallis 88.7 FM or stream live. Also, check us out on Apple Podcasts!

Imagine, you just spent the day at the aquarium. Perhaps you were on a date, enjoying the day with your friends, on a solo exploration, or taking your children on a special trip. Throughout your experience you encountered many live animal exhibits and even got up close with some creatures in touch tanks: sea urchins, sea cucumbers, sea stars, and stingrays. Now take a moment and reflect. What will you remember about today? What conversations or thoughts did you have?

Working on an interdisciplinary project through the Oregon State University (OSU) Environmental Sciences program with College of Education advisor Dr. Lynn Dierking, PhD candidate Susan Rowe seeks to illuminate the impacts of free-choice learning – or the learning that occurs in informal settings, such as museums, zoos and aquariums. A conservation mission has driven these institutions to shift in recent years from a menagerie of captive animals on display to these animals acting as ambassadors for their ecosystems. But is this message clear? Through her studies, Susan is examining visitors’ conservation narratives at live animal exhibits in order to better understand what counts as conservation talk for families, what research methods better help us understand that, and how education experiences can better advance the conservation mission of these institutions.

Susan Rowe with the Octopus at Hatfield Science Center Visitor Center

After filming and observing 10 families’ interactions with the Touch Tank at the Hatfield Marine Science Center Visitor Center in Newport, OR, Susan invited the families to construct concept maps – a visual thinking routine to represent their thoughts and ideas –and conducted interviews to understand the families’ perceptions of the experience. Susan also conducted a focus group with professionals involved in the field of conservation at different levels, and they too built conservation concept maps. With insights about the meaning of conservation for families and professionals, Susan constructed a rubric as a research tool to identify where, when and how conservation dialogue happens at live animal exhibit. She is using the rubric to evaluate further interactions from additional 50 families who visited the exhibit and were recorded through the Visitor Center CyberLab project, a system of surveillance cameras established to collect visitor data through advanced technology that uses facial recognition, eye tracking and other research tools to understand visitor use of exhibits, their movement and conversations.

Susan Rowe holding a stuffed “brain cell” at the March for Science In Newport, Oregon, Earth Day 2017

So what are these families talking about? Spoiler alert: it’s not conservation, at least not directly. And when families are asked to discuss conservation and what it means to them, the central theme seems to be their values. Different from common methods of studying the impact of free-choice learning, which focus on knowledge gained, Susan is identifying that a more holistic approach may be necessary for researchers to understand what challenge or provoke conservation talk at live animal exhibits. Susan hopes that her research will help determine better ways to engage audiences to think explicitly about conservation, i.e. values-based approaches to research and practice as opposed to values-changing. Susan suggests that if we can better understand how conservation talk is shaped in these experiences, we can advance our research methodologies and education curriculum design in ways that give families what they are looking for and, perhaps advance the argument that animal exhibits are indeed valuable conservation education platforms.

Susan Rowe and her family doing what they love… enjoying a beautiful day at the beach!

Growing up in Recife, Brazil, with the Atlantic Ocean as her playground, Susan spent her childhood dipping her feet into tide pools and exploring the wonders of the ocean – a curiosity and passion that has never faded. As an undergraduate at the Universidade Federal Rural de Pernambuco, Susan completed a dual-degree in Biology and Education with a license to teach. An undergraduate exchange program at Iowa State University (ISU) brought Susan to the United States for the first time. After spending some time as a middle school science teacher in Brazil, Susan returned to ISU to pursue a Master’s degree in Animal Ecology. Upon her move to Oregon, Susan worked as a marine educator at the Hatfield Marine Science Center, a volunteer at Oregon Coast Aquarium, teaching instructor for the Afternoon Adventures program at Muddy Creek Charter School, a field researcher for the Oregon Department of Fish and Wildlife, and has occupied a variety of job positions at OSU as well, including working at Hatfield Science Center as a research assistant and exhibit designer.

Susan Rowe and Benny Beaver

After spending years working as a frontline educator, Susan realized her desire to do more work behind the scenes as a museum, zoo, or aquarium education director in order to keep her feet in both research and teaching opportunities, which led her back to graduate school. At OSU, Susan has had the freedom to design her interdisciplinary PhD program of study, which melds sociology, philosophy, and anthropology with environmental education and ethics, providing a rich foundation for her research. Through her PhD program, Susan has realized her desire to continue to do free-choice learning research and ultimately seeks an academic position where she can continue finding the best ways to make an impact on the environment through free-choice learning venues.

Join us on Sunday, January 28 at 7 PM on KBVR Corvallis 88.7 FM or stream live to dive deeper into Susan’s free-choice learning research and journey to graduate school.