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Decision Point (This the fifth chemo I have tried and if it does not work I am considering stopping it alltogether.): I have been so sick over the past few years and can not spend the rest of my life this way. My children are suffering as a result and maybe if I wasn't so sick, then I could be there for them as they want.

:( I know how it feels as far as kids go. I feel like an awful mom. I'd always been the one to take care of our 3 daughters and now my husband and daughters take care of me. With school starting this will be my first year not taking them and picking them up from school and it breaks my heart. I'm sure things will get better, but XXX, it sucks waiting for it to "get better."

Side Effects (Fatigue (tiredness)): The side effects are many and all hinder my ability to care for my children in the way I would like to. I rarely get to play with them or share many meaningful moments because I am either sick or too tired or a combination of both.

I'm not sure what your question is, but you can search for other people with your illness under People, Cancer, Sarcoma, Hemangiopericytoma. There are several people out there who might be able to answer some of your questions.

What is that Goodwill number?

The Goodwill number is one way you can tell how helpful each WhatNext member has been in providing information that may help others in the network. Someone with a “0” by their name may mean that they are new to the network, while someone with a higher number means that they may have either posted more information in their journey, asked questions and/or provided answers that others may have “liked.” Your number can change daily based on your contributions and involvement.

As you get involved and contribute on WhatNext, you’ll be recognized with the following badges:

0 - 500

501 - 1499

1500 - 3499

3500+

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