enhancing the lives of patients with cystic fibrosis..... www.reachingoutfoundation.org

Susan's Transplant Video is on You Tube

Susan Burroughs, the Founder of Cystic Fibrosis-Reaching Out Foundation has now put her transplant video on You Tube. To see the video please go to http://www.youtube.com/ and search "Susan Burroughs".

Wednesday, October 22, 2008

ATTENTION Physically Active Adults with CF:

We need YOU for an exercise study!

We are researching salt loss in sweat during exercise in the heat and the impact that this has on fluid and electrolyte balance.

Why participate?

You will gain valuable information about your hydration and electrolyte needs during exercise in the heat. You will also find out your aerobic fitness, your percent body fat, and your bone mineral density. By participating, you will help to uncover important research findings that may impact quality of life issues for CF patients. You will also be compensated $100 for your time.

In order to participate you must meet the following criteria:

Age 18-40 yearsIn stable clinical status with sound pulmonary function, and approved by a CF physician for participation in this studyRegularly physically active in aerobic exercise at least 90 minutes/week for at least the past six monthsWilling to perform a maximal exercise test on the bike and have your body composition measured with a DEXA (low-dose X-ray) scan (first session)Willing to perform a stationary bike ride (low to moderate intensity) in the heat up to ~ 2hrs in duration (second session)Willing to have a flexible blood catheter inserted into arm vein for periodic blood collection during ridingWilling to swallow a pill-size sensor for body temperature monitoringWilling to have two small (4 mm diameter) skin biopsies removed from the shoulder blade area under local anesthesia by a dermatologist

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Contact Information

The Cystic Fibrosis-Reaching Out Foundation Inc. is a 501c3 non-profit organization dedicated to helping families with with cystic fibrosis in times of crisis. We work directly with the social workers at qualified cystic fibrosis centers who are familiar with the unique medical and social needs of the families affected by cystic fibrosis. We are an all volunteer organization and rely on donations for our funding.

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About Cystic Fibrosis-Reaching Out Foundation Inc.

Cystic Fibrosis-Reaching Out Foundation, Inc. is a non-profit organization dedicated to providing assistance to patients and families with Cystic Fibrosis. The Reaching Out Foundation, Inc. is operated solely through volunteer support. Great effort is made to ensure that every penny of your donation works to assist patients and families in need. The Reaching Out Foundation, Inc. is committed to improving the well being of cystic fibrosis patients and their families by providing financial services and education that fortify family structures. While celebrating advances in longevity brought about by CF Research, the Foundation recognizes the challenge of enabling CF individuals and families to plan for their own present and future needs. Therefore, the Foundation relies on affiliated social workers to administer income support to eligible parties and to refer families where the need exists to qualified financial planners in non-profit agencies. Since we were founded in 1998 over $800,000 went to the Programs of the Reaching Out Foundation, Inc. The Foundation’s goal is to maintain cost of services at 80% of expenses or higher. Currently, our % is 84% The Foundation does not pay salaries, rent or utilities.