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Current activities

The ISG has an online shop.

You can easily browse and purchase merchandise directly through the website.

Why not raise awareness with our packs of Christmas cards? We also have trolley coins, and of course many of your favourite ISG merchandise items such as Pin Badges, Pens, Keyrings etc are available. Some items are shown below, but to view all items and to purchase any merchandise visit our online shop today!

Did you know we have Awareness Cards that you might like to carry? Are there days when you don’t have time, or sometimes patience to respond to the questions, stares or curiosity of others about ichthyosis? Why not keep some of our cards in your pocket to give to those inquisitive members of the public to educate them and raise awareness!

You can order 20 cards for free (+p&p) from our online shop by clicking here.

Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.

Articles for the ‘Trustees and Employees’ category

Prior to the birth of my second daughter on the 5th of November 2004, I had never heard of the skin condition known as ichthyosis. Having already been blessed with a beautiful daughter Lydia Mae some 3 years earlier I never imagined her baby sister would be afflicted with an extremely rare congenital condition with […]

I joined the committee in July 09 and attended my first face to face committee meeting on 16th August 09. What a meeting that was! Maggie Aldwin picked me up from home and we travelled up the M1 to Milton Keynes for that first meeting, leaving my poor husband to sort out the washing and […]

My daughter Mandy (please refer to her profile) was born in 1976 in the Royal Berkshire Hospital. She was 5 and half weeks early and very poorly, and they whisked her off to intensive care without me even having a cuddle. My husband was unable to be with me at her birth, and I remember […]

When my oldest daughter was born in 2000 all was wonderful, apart from a few rough patches on her skin. However, the following day her skin begin to blister and suddenly starting shedding all over and would not stop – nearly all of her skin from the neck down came off and she was left […]

My first proper introduction to the ISG was at the 2007 conference in Bloomsbury, London. My wife, Sue, said that her friend Maggie Aldwin was looking for volunteers to help over that weekend. It was to be a special weekend as the ISG was celebrating its 10th anniversary, so of course I said yes. I […]

I was born a Collodian baby and was later diagnosed with Lamellar ichthyosis. I became a member of the Ichthyosis Support Group (ISG) in 2011 and did not really give it much thought after that, I received my monthly news letter and Christmas cards but did not think I had much to give the group […]

My name is Liz I am 37 years old and am married to John. We have two daughters, Ellamay born in 2004, who was born a collodion baby and has Non Bullous ichthyosis and Maisy born in 2010 and does not have ichthyosis. I work part time as a nurse, my background is in mental health nursing […]