Critical Perspectives on User Involvement

Marian Barnes and Phil Cotterell

Abstract

This collection draws together experiences and perspectives on user involvement from user activists, academics and practitioners. It includes chapters that focus on autonomous collective action by disabled people, mental health service users and others; action within the health and social care service delivery system to influence services; and user-led and collaborative research designed to promote ways of understanding the world from service users' perspectives. The book includes examples relating to the involvement of young people, young mothers, older people, people living with cancer and w ... More

This collection draws together experiences and perspectives on user involvement from user activists, academics and practitioners. It includes chapters that focus on autonomous collective action by disabled people, mental health service users and others; action within the health and social care service delivery system to influence services; and user-led and collaborative research designed to promote ways of understanding the world from service users' perspectives. The book includes examples relating to the involvement of young people, young mothers, older people, people living with cancer and woman with alcohol problems, in addition to the experiences of disabled people and mental health service users. Chapters offer conflicting views, for example on the issue of whether the impacts of involvement can and should be ‘measured’. Some chapters offer a historical perspective, arguing for the need to understand both autonomous action and official involvement as interconnected processes of social change. The book highlights both the official acceptance of user involvement as a mainstream activity and the continuing challenges experienced by those seeking not only to have a voice, but also to achieve recognition for their knowledge and understanding. It concludes with a discussion of the continuing need for ‘critical perspectives’, both in the conduct of user involvement and in analyses of it. The book also argues for the necessity of including different perspectives in this process.