This is the story of our twins, Colby & Avery, who were born at only 25 weeks and 5 days.

Thursday, July 31, 2008

Backyard Wildlife and an appointment with the Neurologist

(The doe was actually chewing in this picture but it looks like she's talking or surprised at something.)

I know that for many people, seeing a deer isn't all that interesting. But I know there's a number of people with kids who follow the blog and also some people from areas where there just aren't deer wandering all over the place. So this morning when I saw a deer in our back yard, I figured I'd snap a couple shots and post them. As I mentioned in the earlier post, we were going to pressure the doctors to move forward with seeing and hopefully treating Colby's seizures. At first Yale said they didn't get the fax from Colby's Neurosurgeon. So they refaxed it, and refaxed it and still Yale says "nope, didn't get anything." Well, Tracey apparently let them know a little about how she felt and miraculously, they found the fax to get Colby referred to Yale. They said they'd call back and let us know when we could bring him. A little bit later and Tracey called me in the office to say Yale could see him........on January 8th, 2009! Can you believe it!?? That just seems totally screwy!!!! Tracey then called the neurosurgeon and told him a little about how she felt and we now have an appointment NEXT WEEK (though we don't yet know the day) right at CCMC. The whole medical system drives me absolutely nuts sometimes. So, it's a step in the right direction. Once we get more specific information, i.e. the day and time, I'll let everyone know.

4 comments:

Lorna
said...

Yah, for women with authority :) I don't doubt doctor's intelligence, but sometimes they're not so good at standing in the shoes of their patients. That's great that you don't have to go all the way to Yale. All of Colby's videos are so cute, but I love the photo grabbing Hannah's arm, the mind of the baby is often comical. Have a great weekend.

Way to go Tracy for parent advocacy! Yes the medical field has a tendancy to make people feel like they're going crazy. I also love the photo's of Colby with Hannah. He's looking at her arm like it's the greatest toy ever.

About Me

This story is written from a dad's perspective. We went through infertility for 4 years before we found out we were pregnant with twins in March of 2007. Life dealt us an unexpected hand when Colby and Avery came 3 ½ months early due to PROM of twin A. I started this blog to keep friends and family up to speed on the happenings during our NICU experience. However I’ve been amazed at the interest and support that has come from family, friends and complete strangers. I am moved by the connection that people feel toward our situation and to hear the stories of how our story has in some way helped others through difficult times.
Thank you all for your support and compassion during our journey. I hope one day for Colby to be able to read this and know the impact he’s had and the amount of people he had supporting him.