Cancer Survivors Network - Comments for "Anyone! Please help me! I am alone!"http://csn.cancer.org/node/251371
Comments for "Anyone! Please help me! I am alone!"en-csnSo happy for youhttp://csn.cancer.org/comment/1477023#comment-1477023
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1368124#comment-1368124">9 year survivor!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi VickiJune</p>
<p>just wondering how you are still doing. I am recently diagnosed with stage iii peritoneal ovarian cancer and it has spread to a few of my lymph nodes, I just started chomo and then will have surgery and abdominal chemo. I am scared out of my mind. I have changed my diet completely and am doing everything I can to be well. Did you do any alternative medicine techniques?</p>
<p>Thank you!</p>
<p> </p>
<p>Judy</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 11 Nov 2014 13:10:43 +0000jlgrantcomment 1477023 at http://csn.cancer.orgMultiple symptomshttp://csn.cancer.org/comment/1467535#comment-1467535
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<p><em>In reply to <a href="http://csn.cancer.org/node/251371">Anyone! Please help me! I am alone!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>You may have a combination of things. Hypothyroidism can cause extreme fatigue. The opposite condition, hyperthyroidism, can cause weight loss. Abdominal pain can be caused by a number of conditions including celiac disease (best diagnosed by a biopsy during a colonoscopy, but there are also blood tests that sometimes show it). Abdominal pain can also be caused by ovarian cysts, but they probably would have shown up during your other workups. I'm not positive about this, but I'm pretty sure that ruptured ovarian cysts can leave some free fluid behind (I used to work in a hospital ER where I had a job reading charts). Abdominal pain, chronic fatigue, and weight loss can be caused by hemochromatosis, a genetic condition which causes your body to store too much iron. A ferritin test can be done to see how high your iron level is. The reading should be below 150. If it's above that, you could have genetic testing done to see if you have the genetic make-up to have this disease. If you do, treatment is to keep taking blood out of you (often weekly) until your level gets down to normal. I have this, and I had an MRI to see if any of my organs were damaged by it, which they weren't. My genetic profile isn't the one that normally causes hemochromatosis, but one that sometimes causes it, and science doesn't know why it sometimes does and sometimes doesn't. I think my iron ovrerload was caused by my taking a lot of vitamin C, which causes the body to store iron. I wasn't diagnosed until after I completed treatment for uterine cancer, and I was still short of breath when my chemo had been over for 3 mos. Incidentally, the weight loss from hemochromatosis comes about from liver disease caused by the hemochromatosis. Maybe that would have shown up in your other tests. I don't know. Having your period tends to help hemochromatosis, but when you hit menopause, your iron levels start going up. Abdominal pain can also be caused by diverticulitis, but that should have shown up in your tests.</p>
<p>My step daughter had the pain with intercourse due to a bad case of endometriosis. I think fibroids also can cause this. Probably these would have shown up in your previous tests, though.</p>
<p>Fatigue can be caused by eating too many simple carbohydrates, which make your blood sugar plummet an hour or so after eating these foods. Complex carbohydrates make your blood sugar go down more slowly. Whole grains are complex carbohydrates. White bread, white rice, and many pastas are simple carbohydrates. </p>
<p>Although I had stage IVb uterine cancer, I never had any weight loss. I did have abdominal pain occasionally and I was often fatigued after meals. My diet may have been at least partially the cause of that. I didn't have any free fluid. I had a mass show up in my peritoneum on a CT and PET/CT of my abdomen in late May of this year, but my CA-125 remained low. I had a physical which showed no ascites. My gyn/onc is having me have a repeat CT next week to see if the mass has grown. He wasn't even sure that it was cancer. It it has grown, he'll take it out. If it hasn't, he'll probably keep an eye on it. His PA told me it could be a fluid build up from my lymph node removal, even though I'm over four years out from my surgery.</p>
<p>I wish you luck in diagnosing your condition. I always thought I had something wrong with me, too, and it turned out I did. I'd thought I had celiac disease and kept getting tested for that since my mother had it. It wasn't until I started bleeding that I was diagnosed with cancer. </p>
<p> </p>
<p> </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 06 Sep 2014 02:21:38 +0000pinky104comment 1467535 at http://csn.cancer.orgYour story is so motivating,http://csn.cancer.org/comment/1466966#comment-1466966
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1368124#comment-1368124">9 year survivor!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Your story is so motivating, vickijune. It's also motivating that there are so many people who can provide emotional support to others while battling their own cancer.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 02 Sep 2014 18:30:12 +0000Kimroseccomment 1466966 at http://csn.cancer.orgWow!! http://csn.cancer.org/comment/1466673#comment-1466673
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1368124#comment-1368124">9 year survivor!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi there your story is inspiring and I've read it about 20 times! It gives me hope and makes me feel a lot more positive</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 31 Aug 2014 23:13:35 +0000Robyn Angelacomment 1466673 at http://csn.cancer.orgSo great to hear!http://csn.cancer.org/comment/1414934#comment-1414934
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1368124#comment-1368124">9 year survivor!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>vickijune it is so great to read your story. I have stage 3c PPC and was diagnosed in July 2013. I'm still having chemo and take each day as it comes. Some are good and some are bad!. Your story gives me hope that I can live longer and see my children grow up. I'd rather be hit by a bus than have to say goodbye to my kids forever. I'm only 45 and feel I have much to live for yet.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 31 Oct 2013 09:37:26 +0000Robyn Angelacomment 1414934 at http://csn.cancer.orgRecurrent bowel obstructionhttp://csn.cancer.org/comment/1404042#comment-1404042
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1403474#comment-1403474">Recurrent bowel obstruction</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hello Michele,</p>
<p> </p>
<p>Thank You for your response. </p>
<p>This is her second episode of Bowel Obstruction and as you have experienced, Thank God this second one did resolve itself also.</p>
<p>You made a good point because she was told that the cause was more than likely the cancer and not adhesions. and we also noticed that when she's on the "right" chemo she does not have these issues. We'll have to talk to her doctor about the hydration at home.</p>
<p>I'm so glad you dont have signs of blockages and I will pray for your continued healing and health.</p>
<p> God Bless and Thank you once again.....for taking the time to responde.</p>
<p>Angelique</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 13 Sep 2013 22:56:31 +0000Angelique5comment 1404042 at http://csn.cancer.orgRecurrent bowel obstructionhttp://csn.cancer.org/comment/1403474#comment-1403474
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1403147#comment-1403147">Primary Peritoneal Cancer stage 3 &amp; recurrent bowel obstructions</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Angelique5,</p>
<p>I am sorry to hear your sister has to go through all of this. It is an on going battle for sure. I just wanted to mention that I have had several bowel obstructions and ended up in the hospital. Most of them did resolve themselves without surgery but in Jan I did require surgery and ended upwith an ileostomy in my transverse colon. They made a loop and the stoma is up in the left quadrant of my abdomen. It took me some time to wrap my head around this but just deal with it now. Mine were caused by the cancer and when I have the right chemo cocktail it has helped prevent further obstructions. I was diagnosed with Ovarian cancer in 2010 that had spread to thru the peritoneal area. Once the blockages were clearwaste Dr had me stay on a low residue diet. I recently had another blockage in June but the new chemo I was put on cleared it without hospitalization. I was also hooking to an IV daily ( at home) for hydration. Hydration helps clear the blockage too. I am currently going OK with no signs of blockage. I am happy about that! Prior to getting my ileostomy my surgeon had gone in laproscopically to take a look and see what was causing the blockage and it was clearly the cancer. I also had a colonoscopy at the same time to check for adhesions. The GI Dr removed any adhesions he came across. I sope your sister can get through this one without major surgery but maybe a colonoscopy or laproscopic exploratory surgery might help determine the cause. There are this root causes. Could be diverticulitis....hope that helps. Sending positive healing energy to all. Michele </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Wed, 11 Sep 2013 16:57:13 +0000MJensencomment 1403474 at http://csn.cancer.orgPrimary Peritoneal Cancer stage 3 & recurrent bowel obstructionshttp://csn.cancer.org/comment/1403147#comment-1403147
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1368124#comment-1368124">9 year survivor!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I read your post Vickijune and you being a 9 year survivor gave me sooo much hope! </p>
<p>During all the surgeries you had, have you or anyone here had recurrent Bowel obstructions??? </p>
<p>My Sister was diagnosed August 2012, first had chemo Carboplatin/ Taxol then debulking, then more chemo. Her CA125 went from 650 before surgery to 40 after the</p>
<p>chemo following surgery. but only 3 months later CA 125 increased to 120 and the ascites was back. So they started her on another chemo Topotecan HCL. And Just about the second week of that chemo tx she developed a bowel obstruction. After an NG Tube and 5 days in the hospital the obstruction resolved itself, Thank God</p>
<p>without needing surgery. One doctor said the cause was adhesions from the surgery, And another Doctor said it was the ascites causing the obstruction. They also said </p>
<p>she may in fact have recurrent bowel obstructions which is part of the Primary Peritoneal Cancer. Has anyone gone though these obstructions???</p>
<p>And just a few hour ago she was re-admitted for yet another bowel obstruction. I'm so depressed!!!!!!!!!!!!!!!!!!!!!!!! All I read web searching is that once bowel </p>
<p>obstructions start....... the prognosis is poor................... have you or anyone here hava any info on this??? I would greatly appreciate it.</p>
<p>God Bless you all</p>
<p> <br /></p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 10 Sep 2013 04:54:16 +0000Angelique5comment 1403147 at http://csn.cancer.orgThank you Vickihttp://csn.cancer.org/comment/1368722#comment-1368722
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1368318#comment-1368318">Good Luck, Julie</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Yes I agree it is important to live life as normally as possible and if anyone starts treating me like an "invalid" I let them know I am "perfectly fine thank you very much"! I do as much as I can that I did before. Unfortunately had to cancel a trip to Canada this September (from Australia) as Dr felt it was a bit much at the moment so we are planning a number of short trips within Australia and hopefully Canada next year!</p>
<p> </p>
<p>Julie</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 12 May 2013 02:15:45 +0000JulieLcomment 1368722 at http://csn.cancer.orgMy momhttp://csn.cancer.org/comment/1368379#comment-1368379
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1368124#comment-1368124">9 year survivor!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Thank you so very much for your wonderful, upbuilding post. We are currently waiting for Memorial Sloan Kettering to give us a opinion on her scans. It was so nice to hear positive news and to hear how terrific you are doing. We just hope that she will decide to do some treatment. The doctor was a bit of a downer, so I really don't want him to be on her team. We need positive attitudes like yourself. Keep on doing well, and I will keep you and everyone in my prayers. Thank you so much again!!!</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251371%23comment-form">Log in</a> or <a href="/user/register?destination=node/251371%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 11 May 2013 00:20:18 +0000mymommariecomment 1368379 at http://csn.cancer.org