Reiko October update!

Hey there! thanks for everyone who is always asking about us! Here is a recap of the last little bit! How are you all doing? tell me about the not so little ones!!

We are doing well here. Reiko has had a hard month, it started out with pneumonia so he was admitted for a few days again, then right after he broke his femur(top leg bone) and then his arm on the opposite side of the body, and then today his arm wasn't doing to good so we spinted it before it fully broke. but otherwise he is amazing, always humming songs and boy is he loud, he is a funny little man and super happy when he isn't in pain or sick, and he is now getting into stuff by scooting himself around on his back or side, he is working on sitting still, its been along battle that one, he starts to sit independently but with us behind him and then he will fracture his legs somehow and regress, but hopefully he will get it soon. he doesn't crawl or stand or anything like that, he actually doesn't even know how to stand yet and he doesn't use his arms as much, but he has come so far its amazing. the only hard part now a days is alot of people notice how tiny he is or how different he looks and have comments, especially kids, I always hear from them "He has really big eyes" and once" HIS EYES ARE FREAKING ME OUT!" by a 4 year old haha. The kids I can deal with adults are another story. When he had his leg broken and arm broken at the beginning of the month, it was a warm day so I had him in a sleeveless, shorts onesie, while I needed whipcream from the corner store across the street from me, so I brought him out with me and could not for the life of me figure out why this lady was driving by super slow and glaring at me, then I went into the store and everyone was still staring at me, and then I looked a Reiko and realised that he was covered in splints over half his body, and of course I was then worried that CPS was going to be called on me cause the old lady driving by saw me come out of the house. Thankfully no CPS calls. So its stuff like that that is hard, I have found that I tell everybody I talk to about his disease, and have now realised its my defense mechanism, so they wont think I'm a horrible mother when my son has broken bones everywhere, and its also my defense mechanism for him, so that they wont touch him or bump into him and think its nothing. We go for another treatment in Montreal in alittle over a week and I can't wait for him to get it done, get that miracle juice flowing. I don't know where we would be without those drugs. Kai has started his Juniour Kingergarten in September and LOVES it! We love it too. He is growing up so fast, and Reiko loves having just mommy and daddy time! Life is good right now, until the next group of crappy stuff happens lol. Take Care everyone! xoxoxo

Hey there! thanks for everyone who is always asking about us! Here is a recap of the last little bit! How are you all doing? tell me about the not so little ones!!

We are doing well here. Reiko has had a hard month, it started out with pneumonia so he was admitted for a few days again, then right after he broke his femur(top leg bone) and then his arm on the opposite side of the body, and then today his arm wasn't doing to good so we spinted it before it fully broke. but otherwise he is amazing, always humming songs and boy is he loud, he is a funny little man and super happy when he isn't in pain or sick, and he is now getting into stuff by scooting himself around on his back or side, he is working on sitting still, its been along battle that one, he starts to sit independently but with us behind him and then he will fracture his legs somehow and regress, but hopefully he will get it soon. he doesn't crawl or stand or anything like that, he actually doesn't even know how to stand yet and he doesn't use his arms as much, but he has come so far its amazing. the only hard part now a days is alot of people notice how tiny he is or how different he looks and have comments, especially kids, I always hear from them "He has really big eyes" and once" HIS EYES ARE FREAKING ME OUT!" by a 4 year old haha. The kids I can deal with adults are another story. When he had his leg broken and arm broken at the beginning of the month, it was a warm day so I had him in a sleeveless, shorts onesie, while I needed whipcream from the corner store across the street from me, so I brought him out with me and could not for the life of me figure out why this lady was driving by super slow and glaring at me, then I went into the store and everyone was still staring at me, and then I looked a Reiko and realised that he was covered in splints over half his body, and of course I was then worried that CPS was going to be called on me cause the old lady driving by saw me come out of the house. Thankfully no CPS calls. So its stuff like that that is hard, I have found that I tell everybody I talk to about his disease, and have now realised its my defense mechanism, so they wont think I'm a horrible mother when my son has broken bones everywhere, and its also my defense mechanism for him, so that they wont touch him or bump into him and think its nothing. We go for another treatment in Montreal in alittle over a week and I can't wait for him to get it done, get that miracle juice flowing. I don't know where we would be without those drugs. Kai has started his Juniour Kingergarten in September and LOVES it! We love it too. He is growing up so fast, and Reiko loves having just mommy and daddy time! Life is good right now, until the next group of crappy stuff happens lol. Take Care everyone! xoxoxo

Thanks for the update. I'm sorry to hear Reiko has had a rough time lately but he sounds like he's growing up having fun!

I think I would welcome a call from CPS because then it would mean someone had enough gutts to call! I think it's great that you tell everyone about his condition even if it is a defense mechanism. There's no better way to get the word out about his condition. People tend to pay more attention to conditions when they can put a face to it or can think, "I met" or "I know" this person.

Ooh, and I have to say Jr. Kindergarten sounds like SO much fun!

Thanks for the update. I'm sorry to hear Reiko has had a rough time lately but he sounds like he's growing up having fun!

I think I would welcome a call from CPS because then it would mean someone had enough gutts to call! I think it's great that you tell everyone about his condition even if it is a defense mechanism. There's no better way to get the word out about his condition. People tend to pay more attention to conditions when they can put a face to it or can think, "I met" or "I know" this person.

Ohh Kai just loves his JK, he cannot wait to go back everyday! Whats even cooler is that he has a little person in his class and when Reiko goes to JK there will be another little person in his class as well, so the school will have at least 3 little people at once which is funny considering I live in a town of about 2500 people haha. BTW, your daughter looks like she loved the birthday cake lol!! So cute!

Ohh Kai just loves his JK, he cannot wait to go back everyday! Whats even cooler is that he has a little person in his class and when Reiko goes to JK there will be another little person in his class as well, so the school will have at least 3 little people at once which is funny considering I live in a town of about 2500 people haha. BTW, your daughter looks like she loved the birthday cake lol!! So cute!

JK sounds great! I can't wait for my LO to do something like that. She loves playing with other kids already so it'll be fun, I'm sure.

Wow, only 2500 people and 3 little people? That's got to be unusual odds. Many children that grow up in small towns end up being close minded. I think it will be really good for your child and others to grow up around others who are different than them. I live in a very small, very white, farm town. My church is probably the most diverse group in the area so I really welcome that for my LO.

Oh, thank you for noticing my posts. I always feel like you don't have to say much at all to actually encourage people but you do have to say something!

JK sounds great! I can't wait for my LO to do something like that. She loves playing with other kids already so it'll be fun, I'm sure.

Wow, only 2500 people and 3 little people? That's got to be unusual odds. Many children that grow up in small towns end up being close minded. I think it will be really good for your child and others to grow up around others who are different than them. I live in a very small, very white, farm town. My church is probably the most diverse group in the area so I really welcome that for my LO.

Oh, thank you for noticing my posts. I always feel like you don't have to say much at all to actually encourage people but you do have to say something!

Thank you so much for the update! I love to hear how your LO's are growing! You are an amazing mother and you are doing great things by educating people about Reiko's disease (myself included)! I am sorry that he has been having a rough time, but hopefully the treatment you are going for soon will help things!

Thank you so much for the update! I love to hear how your LO's are growing! You are an amazing mother and you are doing great things by educating people about Reiko's disease (myself included)! I am sorry that he has been having a rough time, but hopefully the treatment you are going for soon will help things!

Great to hear from you, though I am sorry Reiko is having a rough time right now. I can imagine how difficult it is to have people stare, just remember they are ignorant not mean and telling them about his disease is just "enlightening" them. You are doing great momma!

Great to hear from you, though I am sorry Reiko is having a rough time right now. I can imagine how difficult it is to have people stare, just remember they are ignorant not mean and telling them about his disease is just "enlightening" them. You are doing great momma!

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