Welcome

Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and
others concerned about HIV/AIDS. Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the
conversation yourself by registering on the left side of this page.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive
and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a
username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own
physician.

All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators
of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please
provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are
true and correct to their knowledge.

I called Dr.Needle, and he said that hiv can be cured, after that antibody can not be detected by test. If it is true, I can be accept by my culture community and then go to get married and have healthy kids to still have my dreams, if stay with his supplements (but can never stop his program otherwise the disease will come back). He said that he will advise 500 foods in 7 pages, and with right water and his monthly supplements (100$/month) based on individual's genetic as he can tell from the energy and phone call. Can we trust this?

I called Dr.Needle, and he said that hiv can be cured, after that antibody can not be detected by test. If it is true, I can be accept by my culture community and then go to get married and have healthy kids to still have my dreams, if stay with his supplements (but can never stop his program otherwise the disease will come back). He said that he will advise 500 foods in 7 pages, and with right water and his monthly supplements (100$/month) based on individual's genetic as he can tell from the energy and phone call. Can we trust this?

The guy is crackers. He claims he can cure HIV but not AIDS, by giving you a diet and supplements. As they say, there is one born every minute... sucker that is.

If it is true, I can be accept by my culture community and then go to get married and have healthy kids to still have my dreams, if stay with his supplements (but can never stop his program otherwise the disease will come back).

Again, where do you live?Listen I don't want to ridicule your naiveté because you need to belong to this forum desperately and I hope you are not hurt by the "tough love" some people hand out.

The first thing you need to do is really read some truthful information about HIV. There is no cure. There is very effective treatment. And it's that simple. You can have a "normal" life but that really depends on YOU, your mentality, and obviously if you life in a place where you can get health care and treatment? So do you? Are you going to be able to get anti-retroviral treatment when you need it?

You seem really in turmoil in a few of these threads. You need to come back down to earth, back to reality, and face the hard fact that you have a virus, its treatable, and you are going to have to make your life with it.

If you have access to treatment, you can have a family.

I don't want to belittle whatever hideous bias and discrimination, hatred and stupidity might exist in your culture. But now it up to you to RISE above the your cultures obvious stupidity on this topic and make a good life for yourself.

« Last Edit: June 30, 2012, 08:30:46 PM by mecch »

Logged

“From each, according to his ability; to each, according to his need” 1875 K Marx

I don't want to belittle whatever hideous bias and discrimination, hatred and stupidity might exist in your culture. But now it up to you to RISE above the your cultures obvious stupidity on this topic and make a good life for yourself.

WTF!! are you saying this doesn't happen in your culture?...is your culture above all that.

Seeing how this thread is turning out I would like to apologise to Wherehope . I meant no disrespect to you and my tendency to joke around got the better of me . I wasn't quite clear if your questions about this doctor was sincere or tongue and cheek humor ... so I'm sorry if I offended you .

I can cure HIV with a knitting needle and pair of tights if you give me $1,200/year. As can 1,000s of other people with 1,000s of other techniques. They give false hope and ultimately lead to expense, illoness and death. The only thing that works at the moment is anti-hiv medicines.

HIV is a virus, and treatable with anti-viral medicines. Provided HIV is diagnosed in good time there is no reason why people can't get married, fall in love, have babies, get a top job, climb a mountain, eat in the same restaurant as their family etc etc. It is common enough belief that HIV, or having HIV, stops you doing things, but this is a myth. It's just a virus.

Hi no offend to me. I have been too desperate and just look for whatever if there is a cure. HIV/Aids is extremely rare in my traditional nation and it is regarded as bad behavior results and also many people think that it can be spread easily such as hand shake, and people will just run far far away from the patient.... I actually live in US now and maybe have access to treatment in the future. I have been trying to learn to be strong since I may still hold my career as another important life goal, though have no hopes for family and loving any more.

Just like your name implies where there is life there is hope . Never give up on your dreams and your life's goals . If and when you need treatment today's HIV meds can give you a very good chance to do all the things in life you want to .

There will always be people trying to profit on this disease but as long as you have this forum for information you need not worry . If a credible cure is ever found this forum will probably be one of the first places you hear about it from .

I don't want to belittle whatever hideous bias and discrimination, hatred and stupidity might exist in your culture. But now it up to you to RISE above the your cultures obvious stupidity on this topic and make a good life for yourself.

Seriously Meecch. That is one hell of an insensitive comment. Your cultural and intellectual "superiority" are not very helpful in this case.

Logged

"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

You do not need to buy this man's snake oil to stay healthy. The "right" kind of water can easily be purchased in a supermarket. Look for water with electrolytes, like SmartWater. The right kind of nutrition or supplements can also be purchased on your own. Just don't overdo it. When I initially got the diagnosis, I reacted by taking green tea extract, carnitine, vitamin d, vitamin b,vitamin c, selenium, maitake mushroom tincture, turmeric with milk, probiotic yogurt and capsaicin every day. EVERY DAY! I ended up overloading my liver and kidneys, especially with the green tea extract (bad stuff) and my vigilant strategy for survival ended up causing me great harm. Do your research on vitamins and supplements, and take all of it in moderation, but try to get most of it from food. Most important thing you can do is get on ART. You owe it to yourself. Just look at the statistics re: HIV before and after 1996.

Hi no offend to me. I have been too desperate and just look for whatever if there is a cure. HIV/Aids is extremely rare in my traditional nation and it is regarded as bad behavior results and also many people think that it can be spread easily such as hand shake, and people will just run far far away from the patient.... I actually live in US now and maybe have access to treatment in the future. I have been trying to learn to be strong since I may still hold my career as another important life goal, though have no hopes for family and loving any more.

Generally speaking, most people in most cultures tend to think "HIV is a result of bad choices/behaviours" and this mindset only fuels prejudice against us. I hope that you don't think this way though.

As others have already said, there's no reason you can't have a good career or a family or find love. You can do all of these things. Give it some time mate, it gets better!

As for Dr. Needle and other quackery, please don't buy into any of this. They're looking to exploit desperate people. You have nothing to gain and only money to lose. Current treatments are very very effective and they're likely to improve in the future; there's no need to look outside of it.

WTF!! are you saying this doesn't happen in your culture?...is your culture above all that.

Jan

The OP is implying this is the reality in his/her culture. So I was acknowledging that, rather than ridiculing the OP. Get over yourself. The OP was not referring to the culture in Switzerland or the USA, duh!!! And there is bias everywhere, of course.

« Last Edit: July 01, 2012, 08:07:55 AM by mecch »

Logged

“From each, according to his ability; to each, according to his need” 1875 K Marx

I have been trying to learn to be strong since I may still hold my career as another important life goal, though have no hopes for family and loving any more.

This is where you need to overcome and rise above the mentality you have inherited from your culture! Especially since you live in the USA now. You can have love and you can have a family. Are you choosing to ignore what people here are explaining to you? Or does it seem so impossible that it just can't compute for the moment? I'll say it again for emphasis. HIV+ people have loving relationships.And HIV+ people can have children.

Logged

“From each, according to his ability; to each, according to his need” 1875 K Marx

The OP is implying this is the reality in his/her culture. So I was acknowledging that, rather than ridiculing the OP. Get over yourself.

You passed a disparaging remark implying that the OP comes from an inferior culture to yours (that seems to be your opinion fine; but it's wrong to put down someone in this way). Just saying, in case you can't see how that came across.

@ wherehope nothing will ever be better than the current AVR Drug treatment therapy, PLEASE keep your money, and learn to be more informed, this website is a great place to start the learning curve about HIV/AIDS, and how it's treated, I hope that you find the answers your seeking, don't give up OK , were here for you

Logged

"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Hi no offend to me. I have been too desperate and just look for whatever if there is a cure. HIV/Aids is extremely rare in my traditional nation and it is regarded as bad behavior results and also many people think that it can be spread easily such as hand shake, and people will just run far far away from the patient.... I actually live in US now and maybe have access to treatment in the future. I have been trying to learn to be strong since I may still hold my career as another important life goal, though have no hopes for family and loving any more.

Friend, at the present time there is no cure. But there are a number of effective treatments available. It's good that you are here in the U.S. where you can get treatment to keep you healthy. Rather than mistakenly allowing yourself to get drawn into fake cures, you need to make sure you under the care of a reliable doctor who is well informed about HIV issues. Your partnership with such a doctor is one of your best tools for staying healthy.

You are always welcome here to ask questions and to discuss anything that is on your mind. There is a lot of experience and support to be found here from those who are experienced living with the virus.

wherehope, out of your fifteen posts, six are in the Research forum. In your other nine posts, you never once actually mention testing positive or having it confirmed with a Western Blot. You have never once told us what your CD4 or viral load numbers are like. The most you've ever really told us was in your first post:

I am new and 33 years old, and got infected in this year. I have been suffering lots of symptoms: night sweat, sleep disturbance (can only sleep 1-2 hours each night), rash, muscle pains, gum bleeding, etc, I am feeling dying. I have not been on any medicines yet,will the medicine help eliminate the physical pains?

You've PMd me about having a conclusive three month negative and mentioned something about testing at six months, but you never really clarified whether or not you actually tested positive then or if you did, whether or not it was confirmed with a Western Blot. Things just don't add up with you.

If you have tested antibody positive and have been confirmed with a WB, what are your CD4 and VL numbers like?

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

wherehope, I just went looking through my PMs to re-read the first one you sent me and discovered two more recent ones that I somehow missed. A close reading of them tells me that YOU DO NOT HAVE HIV.

Here's the exchange. I only answered your first PM as I only just now saw the two more recent ones.

Ann, you repeatedly said that 3 month is conclusive for hiv test, I guess that it is for the 3rd and 4th generation test. I did the Oraquick rapid test every two weeks and proofed it that it takes 6 months longer.....I used AZT drug during acute infection, and also maybe I am a extremely rare case.----AZT will change the window period. People who do not take any hiv meds during the window period will seroconvert and test positive by three months. ----Ann, yes, that is likely. Though I am still surprised since I only used it for 3.5 weeks after 10 weeks from exposure. But I realized the infection at the day when I found that AZT stopped the symptoms and body felt much better. Also surprisingly all the doctor, hiv agency all told me that I had mental problems and sent me to psychiatrist and they said 3 month is conclusive and the AZT wouldn't affect----(wherehope again)I think I can also sue the CDC They also advised me to stop test after 6 months-the window period they defined, though I told them that I used AZT for 3 weeks and they answered that anti-viral maybe work for other virus too.

Taking AZT ten weeks after a possible infection will not have any effect on seroconversion. If you had been infected with hiv, you would have already have seroconverted by the time you started AZT.

So, you've never actually had a positive result. You felt better while taking AZT. This made you "realise" that you had hiv. You cannot "realise" hiv infection without a positive antibody test combined with a positive Western Blot test. You have had neither.

Going by the second bit of your PMs I put in bold text above, you have tested negative out to six months, but you don't want to believe the doctors because of your symptoms and because of how you felt while taking AZT.

Neither symptoms nor the lack of symptoms will ever tell you a single thing about your hiv status, ONLY testing will. You have tested conclusively hiv negative far outside the window period.

Instead of chasing a virus you do not have, I suggest you go to a doctor to find out what, if anything, is actually wrong with you. Whatever that is, negative antibody results out to six months means that YOU DO NOT HAVE HIV!!!

Ann

PS - to everyone else, I apologise that I missed the two recent - and crucial - PMs I posted above. We could have avoided all this. I sometimes miss important PMs - hey, I'm only human and sometimes WWs fill up my inbox and I miss stuff. I go cross-eyed at times, know what I'm sayin? ~sigh~

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Surely a rhetorical question. With the political will power, financial resources and brilliant scientists we will at least have a functional cure in the future. When-that is the penultimate question. I've been waiting over 27 years!

Surely a rhetorical question. With the political will power, financial resources and brilliant scientists we will at least have a functional cure in the future. When-that is the penultimate question. I've been waiting over 27 years!

I fully believe that a functional cure is inevitable. Might be years away, but there are several drugs in the pipeline that might relegate medical regimen to a weekly, or even monthly dose.

Logged

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."