In adults, the most common features of NF2 occur due to the development of vestibular schwannomas, including:

dizziness

hearing loss

ringing in the ears (called tinnitus)

loss of balance or foot weakness

focal neurologic problems (i.e., weakness)

In children, NF2 most often presents with focal neurologic deficits such as foot drop.

People with NF2 can develop schwannomas (tumors) on other nerves. These tumors can cause severe pain, numbness, and weakness. About 50-75% of people with NF2 will also develop meningiomas along the brain or spine.

Ependymomas may develop inside the spine in about 20% of people with NF2.

For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.

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Maryland Patients

For assistance with making an appointment, please contact the Johns Hopkins Comprehensive Neurofibromatosis Center at 410-502-6732.Request an Appointment