Wednesday, November 17, 2010

From the Mouth of Hannah

Well, the ratings are in, and the readers say "we want more Hannah." So for those of you who enjoy the fresh and zany perspective that Hannah brings to life, here are a few little gems from the mouth of Hannah in the last 24 hours:

At dinner last night we were discussing how Matt seems to be feeling better on the gluten-free diet, and how when he broke the diet to have a bite of communion bread last week he had some real intestinal repercussions. "So girls," I said, "It looks like Daddy's the one who gave you Celiac disease." Hannah gazed up into her Daddy's eyes and grinned, "Thank you, Daddy. I love you because you gave me Celiac, and I love this gluten-free food. You share good things with me."

This morning Hannah cut out a heart shaped piece of green construction paper, scotch-taped it to a purple piece of construction paper and proudly presented me with card saying, "Mommy, I love you; that's why I gave you this card." I smiled and thanked her and gave her a quick kiss on the head, but was in a hurry to finish cleaning up the table. Hannah continued, "I love you so much, you don't know how many loves I have in me. I have one-hundred-and-fifty loves!" I laughed and thanked her again, then whisked some dishes away to the sink. "Don't run away from your heart, Mommy!" Hannah called after me, "It reminds you that I love you!"

At lunch she was feeling a bit less energized. She scoffed at the left-over gluten-free pancakes, took a few bites, then remarked with an enormous sigh, "I'm so tired! I'm so tired I can't even eat my lunch! I'm too tired to even eat anything. I just feel tired, tired, tired!" Growing weary of her incessant babble I responded, "It's strange that you're not too tired to talk." "Well," Hannah replied, not missing a beat, "I'm talking in my sleep. People can do that, you know, but I can't eat in my sleep." It took some effort for me to hide my laughter, but I recovered and countered, "Then I guess you're too tired to eat a snack this afternoon." Hannah paused a moment, considering, then tried a new approach, "Actually I was kidding, I just don't want to eat my lunch, but I have enough energy for snack."

Yes, her beguiling ways are cute now, but I'm scared to see what she'll be capable of when she's 16!

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About Me

About My Children

Naomi is twelve years old and is living with Bardet-Biedl Syndrome, a rare genetic disorder that can cause kidney failure, obesity, retinal degeneration, and various other symptoms. She also lives with Celiac Disease and multiple dietary sensitivities. Hannah is ten and lives with Celiac Disease and food allergies. Emma is eight and lives with BBS like her big sister Naomi. For Emma, BBS has also caused severe speech apraxia. Toby is seven and lives with one functional kidney. Elijah is four and is completely healthy. They are active, whimsical, and too funny to keep to myself.