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I was diagnosed with celiac disease 10 years ago and I have been gluten free ever since. I also experience a lot of fatigue and sleepiness. About 6 years ago I began with deilbating fatigue. I would literally sleep for 18-20 hours a day. I had to be woken up to eat and drink it was horrible and the doctors did not know why. About Two years ago my fatigue/ sleepiness did begin to get better but I was still very sleepy all the time. I recently went to mayo clinic and I finally got a diagnosis. Idiopathic hypersonimia. basically it is excessive sleepiness during the day. Tests to find this are to wear an actiograph which is a watch that measures your sleep patterns, and night time sleep study, and a day time nap study. I hope you begin to feel better!

I dont live in Michigan, I live in Indiana, but Im posting because I wanted to tell all of you in MI that theres a place in Detroit that makes delicous gluten-free food!!! go to celiacspecialities.com all the info is there. GREAT DONUTS!!!

Mmmhhhmm...I went to that website, sounds like me. Im going to mention it to my doctor and see what he thinks. Thanks!
I was told by one doctor that it was Fibro, but he didnt explain it well. I dont know how to treat it. Anyways my doctor who said I had this POT syndrome recomended me to this RN at Mayo Clinic who specializes in POTS and she said that because its a syndrome that Fibro and Chronic Fatigue syndrome fall under the category of POTS. The RN told me how to treat POTS ,but it isnt helping and my gut tells me that I dont have this POT thing. I have really been thinking of other food intolerances lately especially becuase I've been getting really bad stomach aches after I eat, so Im going to check that out more. Thanks!

Hi, I have type 1 diabetes, celiac, hypothyrodism, and now this POT syndrome and for you guys who dont know what that is it is "dysregulation of the autonomic nervous system. The autonomic nervous system is the master regulator of organ function throughout the body. It is involved in the control of heart rate, blood pressure, temperature, respiration, digestion and other vital functions. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies."(Potsplace.com) Anyways I was wondering if anyone has this? I hate it! I have terrible joint pain, extreme fatigue, headaches, dizziness, racing heart, stomach aches (im not eating gluten),itchy eyes, soar throat all the time, I am always sick and my body definitely does not recover as fast as my family and friends. The fatigue is so bad that I had to cut my school schedule in half and I am currently on medical leave at my work. I have increased my fluid and my salt intake and I have started walking every other day, but it isnt seeming to help. Any advice out there anyone can give me?

Hi, I had an ANA of 400 (<40 is normal) that was in July 2005. I went to a rheumotolgist he reassured me that 1 out of 100 people have a postive ANA for no reason. He did alot of tests for lupus, which i was having every symptom in the book at the time and currently I still am. The test he ran came back saying that I had a slighlty elevated DNA and another test was postive for lupus, but he told me that I did not have lupus becuase you must have 4 out of the 11 tests come back postive. So, my doctor labeled me with "Lupus like symptoms" ,all he said to do was to reduce my school schedule by half and when I needed to sleep then sleep. He also told me that I should be better by October. Well I wasnt doing any better, acutally I was alot worse so he repeated the tests and everything came back normal expect for the ANA which came back this time at 100 (<40 is normal). He told me again to give it until December and I did and I was not doing any better so he repeated the test once again and this time EVERYTHING came back normal inculding the ANA.
My doctor does not know why I had all the test come back postive at one time and come back negative another, but in the end I was diagnosed with Fibromyalgia becuase I had the lupus symptoms. Hope this helps!

I have type 1 diabetes and I noticed low blood sugars before being diagnosed with celiac and that was because the food I was eating was not being absorbed so I had low blood sugars. Because I was experiencing low blood sugars I went back to doctor and the doctor changed the amount of insluin I was getting, assuming that I was getting too much. So when I was diagnosed with celiac and I went on a gluten free diet, more food was absorbed and my glucose leverls starting running high. I hope this helps!
-Maggie-

Toni, an Endroconoligst would the doctor you want to go to if you suspect adrenal or thyroid problems. An Endroconoligist specializes in the endrcoine system which includes both the adrenal and thyroid glands. They mainly see diabetics but they also see patients with Addison's disease (adrenal insufficiency). Good Luck!

Hi, my name is maggie and I have had celiac for 2 years, Ive just turned 16 and I am having the worst time trying to stay gluten free. Now that I drive Im on my own more and Ill stop and get a sandwich and I wont get sick...which is weird cus I always used to get sick even when I got a little gluten. Anyways I know that the gluten is hurting my body but its soo hard! I hate this disease! Its worse when Im out with friends and they are eating a mudslide its soo hard not to eat some! I used to be really good with my diet but now it just seems like Im fallin apart and I need some adivce! Thanks!

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Celiac.com was founded in 1995 by Scott Adams, author of Cereal Killers, founder and publisher of Journal of Gluten Sensitivity, and founder of The Gluten-Free Mall, who had a single goal for the site: To help as many people as possible with celiac disease get diagnosed and living a happy, healthy gluten-free life!