But she's has been given a new taste of freedom after a special lift was installed in her home, meaning she can finally go to the upstairs toilet by herself.

And the cheeky youngster loves to tease her sisters by suspending the lift in the air so they can’t reach her.

Sarah said: “It has given her a whole new lease of life.

“Before this, we had to carry her up the stairs every time she needed to go to the bathroom, and she had to wait for me or Gary to help her."

Brave: The condition was caused by a random mutation, not a genetic inheritance (Image: Birmingham Mail)

Over the last 18 months, the Bennetts, and three other families, have raised more than £147,000 through charity events for Muscular Dystrophy UK, which will fund research into treatments and a potential cure for the devastating disease.

Gary said: “We are lucky to live in Birmingham because it meant we were near a specialist and could get an early diagnosis.

“Our aim is to raise as much awareness as possible and as much money for research in Abbi’s lifetime, so there might be a cure.

“If we were to find a cure it would mean everything to us.

Research: Sarah and Gary hope their fundraising efforts will help find a cure (Image: Birmingham Mail)

“Words can’t describe what it would be like to be able to reach those milestones, like walking my daughter down the aisle on her wedding day.”

“Already, research in clinical trials in other forms of Muscular Dystophy has shown they are able to skip over the mutation so the body is able to produce the vital proteins needed in the body,” says Gary.

“We are hoping research will be able to adapt the technology to other forms of the disease, and potentially find a cure.”