Go to your best childrens hospital in your area and go to plastic surgery/cleft palate team asap

--Previous Message-- : Hello, : : I am looking for some advice about selecting : a pediatrician for an infant with PRS : resulting from Stickler's Syndrome. I am 27 : weeks pregnant and genetic testing is : positive for Stickler's (which runs in my : family). So far ultrasounds are showing the : small jaw associated with PRS. Though we : haven't been able to get a view of palate, : we suspect that he will have a cleft palate : as well. I am hoping that some parents can : offer advice about what we should be looking : for in a pediatrician or issues we should : think about as we try to choose one. Are : there any specific questions we should ask : potential doctors? Any wisdom or experience : that can be shared would be greatly : appreciated! :