Hopefuljen

Hopefuljen's Recent CancerCompass Activity

I am a control freak, I need to know exactly what is going to happen. My amazing Dad is nearing the end, after 2 1/2 yrs he is a mere shell of the man he used to be. Bedridden, cannot walk, cannot sit up, can barely get out a whisper. How long will he suffer, how long can his body fight? He claims he is not in pain. But I can see it on his face. I cannot understand why this happened. I am angry, hurt and upset.

I am so sorry to read about your mum, My Dad has been battling this monster for 2 yrs and 8 months. (Right frontal lobe gbm) He fought like hell and now too the time has come to say goodbye. He is in hospital now, cannot walk, no balance, left side is completely gone, cannot swallow thin liquids and only whispers and always has the need to pee. Most of the time he just stares, with very little interaction only mes...

It seems its only expensive to great brain tumours, bowl cancer is a different story, go figure!
I cannot imagine your pain, I wish you all the best, I hope your hubby gives it a go, why the heck not, can't hurt.
Jen

Hi
haven't tried Avastin yet, the oncologist will be deciding today what (if any) type of treatment to do next. Avastin is very $$$ in Aust. Around $3000 an infusion, not that that matters, if there is a chance it may help we will get it.
I guess at this stage with all other issues we need to do what is best for quality of life, as much as its hard to deal with, I think there isn't much medical science can r...

Wow Matt that story just sucks! Vent all you like, I'm a realist - best thoughts to you and your son, (what is his name) I will keep you posted as to what's going on,
It's sad but also reassuring to chat to someone who has anything to do with this awful thing.
I don't think there is an answer, just a realisation that life needs to be lived to the fullest.
Take care
Jen xx