Sunday, June 17, 2012

Let me start by apologizing for not updating for a couple of weeks. I have
been busy creating a new design for this blog and helping a friend create a new
website for his auto repair business.

I have an appointment on 6-18-2012 for a new CT Scan and an appointment
with my GI Sanadra Kane at Mayo Clinic Rochester, MN.

This article is about selecting the right GI for you. I have heard form
many patients on the ButtBook Forum (GI Monitor) that they are unhappy with
their GI or are switching or considering switching to a different GI.

Choosing the right GI can be challenging. Many patients feel they just
don’t have a choice in doctors. Some patients feel helpless or don’t know what
to do.

I have learned first hand that you do have a choice and and that it is up
to me to make sure I have the best care possible.

Clearly, the doctor that you choose will have a direct
impact on how well you do, especially
when you need treatment for a complex gastrointestinal condition. This will be an important relationship in your life
so it's worth investing some time and energy into finding the right doctor.

RESEARCH

With a little research and
effort you can find the right doctor for you.

Get the names
of several doctors and hospitals that offer the newest, most effective
treatments as well as clinical trials that compare the latest drugs with
experimental drugs, which may provide even better results.

Ask you General Practioner for information regarding your
disease. The willingness of providers to give you as much information as
possible is a good sign. It shows that they are dedicated to maintaining and
improving their quality and responsiveness to patients, and that they are
confident in their capabilities.

One source of information that many people do not
take advantage of is your insurance company.It’s a good idea to call both your insurance
company and the doctor’s office to confirm that your health plan will cover the
doctor’s services. For
instance, you might ask your insurance company for recommendations of
specialists who are in your network

Check with "local universities and
medical schools, especially if they specialize" in inflammatory bowel
disorders such as Crohn's disease. Ideally, the same name or names should come
up from different sources.

Look for a gastroenterologist who is
board certified by the American Board of Internal Medicine, the organization
responsible for certifying subspecialists in internal medicine. Board-certified
gastroenterologists, for instance, have spent a certain number of hours
practicing endoscopy, a type of diagnostic test essential in diagnosing Crohn’s
disease. Other
sources such as The American College of Gastroenterology, The American
Gastroenterological Association, The Crohn’s and Colitis Foundation of American
are all good sources for a selection of doctors in your area.

Your disease
management will likely involve more than just your gastroenterologist, so it’s
essential that you feel comfortable with the other health care providers on
your medical team. Your primary care doctor might still treat you for
non-Crohn’s related issues and may coordinate referrals, depending on your
insurance. Nurses and the support staff will play a major role as well.
Depending on your treatment needs, you might need to see a registered
dietician, a mental health counselor, or a colorectal surgeon. Coordination and
communication between different medical professionals involved in your care is
extremely important, so ask who will be taking the lead role in making this
group a high-quality team

Choosing a
qualified and competent medical team is important, but at the end of the day
you’re the one living with Crohn's. It is important to educate yourself as much
as possible. “the Crohn’s &
Colitis Foundation of America Web site is a good resource to find out about
new developments in IBD research.”

GETTING COZY

When
you have done your research and think you have found the right doctor, you need
to remember this is your care and you and your GI are going to have a long term
relationship.

You
need to feel comfortable, safe, secure and confident that this is the right
doctor for you.

The
Crohn’s & Colitis Foundation of America recommends writing down your
questions before your appointment/consultation, to ensure you don’t forget to
ask something you particularly need to know. Take a pen and paper with you on
your visit so you can write down the doctor’s answers and review them later.

The way in which the doctor interacts with you
on a personal level should put you at ease, not make you feel more stressed
about your condition. It is especially important to choose a doctor
you can easily talk with openly and honestly.

Do
I feel comfortable with this doctor? Am I satisfied with his or her answers to
the questions I asked? Was I seen on time when I arrived for the consultation?
Was the office staff helpful, knowledgeable, and friendly? All the little
issues that you’d consider when choosing your primary care physician are just
as important when choosing a specialist to work with you on managing your
disease.

Choosing
the right doctor is essential and important relationship in your life so it's
worth investing some time and energy into finding the right doctor.

Monday, June 4, 2012

I spent Last Tuesday through Thursday in Saint Mary's Hospital in Rochester, Minnesota.
I had abdominal pains so terrible I was actually in tears. I was making trips to the bathroom about 10 times a day with slight blood.
All the lab test came back normal other than a slightly elevated White Blood Cell Count indicating some infection.

I went into surgery for operation on a new fistula. I returned home on Thursday but still not pain free.
Friday I went in for a Remicade infusion. My infusions have been changed from every 8 week to every 6 weeks. I am back on Prednisone at 20mg for 1 week and taper each week by 5 mg. Also taking Tramadol, Flagyl and Cipro again.

I recieved the lecture on being a smoker and will be starting Nicotrol in the next day in order to take smoking out of the equation.

Saturday, June 2, 2012

When I was
first diagnosed with Crohn’s Disease, I ended up in the hospital for 6 days.
After being released from the hospital I was off work for almost 5 months.

This was a
big concern for me as I thought I would surely lose my job due to my illness and I was concerned about loss of income since I live paycheck to paycheck in todays economy. I
contacted my company HR Manager to discuss what was going to happen if I was
out for an extended period of time with my illness.

I contacted
him when I was admitted to the hospital and stayed in touch with him and my
manager. The HR Manager provided paperwork for FMLA (Family Medical Leave of
Absence).

The federal
government has enacted a law that requires employers to maintain your medical
insurance for 12 weeks; however the employee must pay his/ her portion of the
non company contribution. For example if my company pays out $200 per month and
I pay $50 per month, I am still responsible for my $50 contribution. Some
companies will cover the employee contribution if the company policy states as
such. My company policy allowed me to go into arrears while I was off work. If your company does not have this policy, you will need to make those monthly payments or risk losing your coverage. Laws vary state to state so be sure you know your state laws.

Federal law
also requires the employer to hold a position in the company for the employee
for the 12 weeks. Your position is not guaranteed but A position is held for you.

My company also offered Short Term
Disability which was also 12 weeks of benefits at 60% of my monthly pay and I
requested 30% of that to be withheld for taxes. You must pay taxes on the STD
benefits and Long term Disability Benefits.

The FMLA paperwork should be
completed by you and your attending Physician in addition to the Short Term Disability
paperwork required by the STD Insurance company. Your STD paperwork can be
submitted by you directly and in some cases through your HR department. My HR
Manager had me submit my own paperwork after each Doctor visit to the Insurance
Company and copied him on the same paperwork.

It is a good idea to copy your HR
department for sake of good communication, respect and understanding of your
medical status. The company cannot REQUIRE you to provide the information due
to Federal Privacy of Information Act.

What do you do when the 12 weeks
FMLA and Short Term Disability Benefits run out and you are still ill?

Before that time if you know that
your illness will keep you out longer than 12 weeks, you should apply for Long
Term Disability if your company has offered it or if you elected to take LTD.
Not all companies will provide LTD. My company did not however I elected to
subscribe to the policy.

The sooner you can notify the
insurance company the smoother the transition will be from STD to LTD. In some
cases LTD can take up to 45 days to be approved or disapproved. In most cases
of Crohn’s and Inflammatory Bowel Diseases, the application will be approved.
Check your company policy and know your benefits to avoid as much financial
hardship or delays as you can.

Please share your experience about your company policies, state laws and how you managed to find your way through these benefits.

Friday, June 1, 2012

I was just released from Saint Mary's Hospital in Rochester, Minnesota after having a fistulotomy.

I had an active fistula that needed to be opened up after 1,5 weeks of abdominal pain and bathroom trips up to 10 times per day.

The Remicade Infusions were supposed to induce remission and hold the fistulas in Check.

Blood Work has been sent in to evaluate the effectiveness of the Remicade on my system The results will take about 10 days.

The Gastroenterologist at Mayo Clinic is increasing the frequency of the infusions from every 8 weeks to every 6 weeks. In addition I will be going back on Prednisone for several weeks. 20 mg/ day for 1 week, 15 mg/ day 1 week, 10 mg/ day 1 week and 5 mg/ day 1 week.

I will follow up with my GI on the 18th after going in for either a CT Scan or Colonoscopy.

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