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Thursday

Personal stories about Sjogren's Syndrome

This was posted on the blog and we get so many stories here I thought it would be very worthwhile to share some of them:

I was diagnosed at the age of 2, very uncommon, and I am now 24. The past couple years I have been developing more problems and discovering different symptoms connected with my SS. Last year I had a lung biopsy and am now taking an inhaler as needed. I started seeing my Rheumatoid specialist at the age of 14 and it was discovered that I had rheumatoid fluid in all my joints. The fluid has decreased but pain is reoccurring. The most common symptoms I have are: chronic arthritic pain as well as inflammation in my periodic/salivary glands. I have changed my diet and am now trying to be gluten free. Gluten causes inflammation, which SS can tend to be associated with. I have only been gluten free for a few months, however, I do see a difference in how I feel overall.

I am glad I discovered this blog. I find it interesting reading other's experience with SS since I've never met anyone else with this disorder considering it is very rare at my age.

Who makes this blog?

Hi, thanks for dropping by. I am a female, over 40, living in Australia, who has Sjogren's Syndrome - an annoying, common but little known condition. I hope this blog is useful to you in some way and please feel free to drop me a line in comments at the end of any blog post. This site is not intended to diagnose, treat, cure, or prevent any disease and I have no medical training (just so we are completely clear)

WHAT ARE THE SYMPTOMS OF SJOGREN"S?

The hallmark is dry eyes and dry mouth but because it is an autoimmune condition the body can attack many other areas besides the sweat glands. You may have fatigue and aching joints or muscles. The list goes on...