Wednesday, February 13, 2008

CBC Autism Overview and New Brunswick

(CBC Image)

CBC has provided a good general overview of Autism Disorders in Canada in Autism Making sense of a confusing world. The overview includes a description of autism disorders, some autism history (Kanner and Asperger) and treatment. There is a good review of the funding and age restrictions for ABA services for autism in each province in Canada.

There is one important omission and that is with respect to New Brunswick. Here we have a 5 year age cut-off as stated. But New Brunswick has begun to provide ABA intervention in our schools. This has been done by training Teacher Aides and Resource Teachers at the University of New Brunswick - College of Extended Learning Autism Intervention Training Program in Fredericton. A couple of classes of the UNB-CEL AIT have graduated, another is about to, and the government of Premier Shawn Graham and Education Minister Kelly Lamrock have committed to provide another 3 years of training for TA's and Resource Teachers through UNB-CEL.

The UNB-CEL Autism Intervention Training Program is a key part of this approach. The program was developed through the University of New Brunswick with input from the Autism Society New Brunswick. This program is critical to ensuring the quality and integrity of the ABA and other autism services provided in the schools. By training TA's and Resource Teachers the education system's existing human resource system is used to the maximum extent possible. Some Autism Support Workers and Clinical Supervisors have been recruited by the Education Department itself. These people have been trained through a parallel program offered by UNB-CEL so the transition into the Education system is relatively smooth.

There is with any such development resistance. Some senior Education Department careerists have preferred to struggle against the UNB-CEL training in favor of "in-house" training combined with a commercial internet training program but, to date, they have not prevailed. The CUPE local representing Teacher Aides have also filed grievances on behalf of its members since not all current TA's meet the UNB qualifications for admission to the Autism Intervention Training Program. As a labour lawyer I understand the role of the Union in protecting ALL of its members interests but the long term interests of the greatest number of their members is best protected by providing the autism training to those members who qualify for admission. And I would expect that any labour arbitrator hearing these grievances would give the greatest weight to the best interests of the child principle in arbitrating these grievances - in these cases the best interests of children with autism disorders.

Apart from the omission of autism services in New Brunswick's education system the CBC review is a balanced, comprehenseive and informative overview of autism disorders and autism services in Canada.

101 Noteworthy Sites on Asperger's & Autism Spectrum Disorders

Facing Autism on Facebook

Why ABA For Autism?

The effectiveness of ABA-based intervention in ASDs has been well documented through 5 decades of research by using single-subject methodology21,25,27,28 and in controlled studies of comprehensive early intensive behavioral intervention programs in university and community settings.29–40 Children who receive early intensive behavioral treatment have been shown to make substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior, and their outcomes have been significantly better than those of children in control groups.31–4American Academy of Pediatrics, Management of Children with Autism Spectrum Disorders

"We have to look also at environmental factors, and from my point of view, the interaction between the genetic factors and the environmental factors ... It looks like some shared environmental factors play a role in autism, and the study really points toward factors that are early in life that affect the development of the child"
Joachim Hallmayer, MD, associate professor of psychiatry at Stanford University in California

Even Out Environmental and Genetic Autism Research Funding

Right now, about 10 to 20 times more research dollars are spent on studies of the genetic causes of autism than on environmental ones.

We need to even out the funding.

Irva Hertz-Picciotto, UC Davis M.I.N.D. Institute Researcher

My Autism Pledge For Conor

Today I pledge to continue;I Pledge to continue to fight for the availability of effective autism treatments;I Pledge to continue to fight for a real education for autistic children;I Pledge to continue to fight for decent residential care for autistic adults;I Pledge to continue to fight for a cure for autism;I Pledge to continue finding joy in my son but not in the autism disorder that restricts his life;Today, and every day, I Pledge to continue to hope for a better life for Conor and others with autism, through accommodation, care, respect, treatment, and some day, a cure;Today, and every day, I Pledge to continue to fight for the best possible life for Conor, my son with autistic disorder.

Dr. Jon Poling : Blinders Won’t Reduce Autism

"Fortunately, the ‘better diagnosis’ myth has been soundly debunked. ... only a smaller percentage of this staggering rise can be explained by means other than a true increase.

Because purely genetic diseases do not rise precipitously, the corollary to a true autism increase is clear — genes only load the gun and it is the environment that pulls the trigger. Autism is best redefined as an environmental disease with genetic susceptibilities."

We should be investing our research dollars into discovering environmental factors that we can change, not more poorly targeted genetic studies that offer no hope of early intervention. Pesticides, mercury, aluminum, several drugs, dietary factors, infectious agents and yes — vaccines — are all in the research agenda.