Alcohol, Surveys and Learning About Colitis

Thanks for watching and for being a part of the site. I hope you have a great week even if your colitis symptoms, or your mom’s colitis symptoms are out of control at the moment. Flare ups and nasty symptoms don’t last forever. They really don’t.

20 Responses to Alcohol, Surveys and Learning About Colitis

Great video Adam.
Totes agree on the booze. Have a celebratory one a few times a year.
And YES knowledge is KING! The more I know the better I feel and the more comfortable I feel talking about UC with other people.
This is a huge week for me because after nearly three years it just hit me that I have a chronic illness. Woah! But I feel so hopeful and I am heading over to the beach right after this email to go catch some rays and stick my toes in the ocean (luckily I live 5 miles away).
So live it up everyone and make the most of this day.
Thanks again for this great site!
Allison

Nice Adam! Way to rock out (country rock! ) the info…knowledge is definitely power-I sooo agree Bev… and control over UC!
Thanks…just what the doctor should order!
You win already on the guitar…dang you’re a fast learner…you taking that guitar and practicing on your commute?! :-)
You rock! Shelly

Great video. So true about alcohol. I am colonless (waiting for jpouch takedown surgery) and if I drink any more than one drink, I feel like absolute crap. It’s hard enough to stay hydrated, alcohol just makes it so much worse. Not worth it. A friend of mine w/a jpouch told me he gets pouchitis if he has a big drinking night out. It just messes with the bacteria flora in there.

Quick update, I was doing fantastic this year, best I’ve felt since I was diagnosed in 2007, no meds at all. 8 months later a few things have changed:

1. my son was born, very happy moment but my sleep suffered tremendously
2. I was so confident things were going so well, I had a total of 4 beers in half a day at a company outing – headache and dehydration for next 2 days but continued to have solid BMs for a month after that
3. Hired someone at work that I felt competitive with

I’m not going to be very hard on myself here but drinking those beers was a bonehead move! Too confident. Should’ve had water, like I did for months and months before. First beer in years. My hip joint started to act up a few days later but like I said, solid BMs continued. Experienced heartburn, new something was up. Stress at work and baby crying next to my head piled on but I love the little dude. Now I’m in a pretty serious flare for almost 2 weeks, got my labs back and they look bleak. Will most likely go on Prednisone once again, unhappy about that but need to help myself out right?

Just needed to let everyone know what alcohol does to you. Cannot wait for the survey.

Btw, I’m getting a guitar, I want to learn and bring up my son listening to lots of music.

Get the guitar!!! You’ll love it, your son will love it, your neighbors…well, they’re gonna have to learn to love it right!:)

Seriously, it is a super relaxer/fun/toy that never gets old. (invest in a decent tuner too…out of tune guitar can sound kinda scary…:)

I’m bummed to hear that you’re having flarish symptoms, but don’t trip. Those little white pills if you head that direction are often helpful for stubborn flares. I’ve had to resort to them before, and although they are a pain, and sometimes shed side effects, I have to say they did their job.

Sounds like you are definitely in tune with what stresses you out, and although its too bad stress pops up, its even worse when people don’t even recognize what’s stressful in their lives. So good on you for recognizing.

Haha, awesome video! you should start a band, you already have a fan-base

Surprisingly enough, I don’t have problems with vodka or gin. Beer on the other hand, means almost INSTANT-REPALPSE for me. I tried having a sip and right after that, my stomach started acting all crazy. Never again. I have my occasional drink every other couple of weeks and feel great, even the day after. I don’t want to make a habit out of it, it was a nice summer, I enjoyed it, alcohol was a small part of that fun, but I’ll cut it until next spring. All in all, after about 3 years of colitis, i wouldn’t recommend drinking to anyone. Better off. I was completely off alcohol for about 2 years and I don’t regret it one bit. Just drink water with ice in a glass at a party, people won’t know what you’re actually having haha

Recent Reviews

I am a Mom of a teeneager diagnosed wit UC and when I was searching for common ground,comfort and the real story this was it! I haven't finished the book but I have already taken away suggestions for my son's care and utilized them. So that was worth already the cost of the book and recipes. Thank you Adam and I will review again, I am sure positive, when I have time to finish reading and applying!

I found Adam’s book to be very information on about having UC. I am a mom of a UCer but I also have digestive issues. It can be overwhelming at times and Adams book brought me hope. I highly recommend it as a book to help you find your way through it.

Thank you for sharing your story and journey to remission Adam. I am integrating some of your ideas and asking more questions of my health care practitioners to get on my own path to remission faster. Also, the immediate changes I made in my diet has been encouraging to alleviate some symptoms.

Thank you again. I look forward to the next iteration of your cook book.

What an amazing resource. It definitely opened my eyes to the world of UC. I love how realistic Adam was about all the different treatments, and the details of the struggles to get to remission. While it definitely wasn’t what I wanted to hear (I think we can all agree it would be nice if we could just wake up and feel better), it was definitely comforting to know I’m not the only one struggling hardcore to get to remission so that I can hopefully control my pancolitis with lifestyle and not medications eventually. The book had me laughing at times and in tears from being able to relate to the struggles. Thank you so much for writing this book. It’s been such a valuable resource in so many ways, including helping me learn ways to share information so my family and friends can have a better understanding of what it’s like. So again, thank you for this Adam. It is a must read for anyone struggling to gather as much information as possible.

I honestly felt like you wrote my biography. I've lived my life the same way you did, eating, drinking and partying without having to worry. I did have signs along the way as well but didn't take to much notice to it until the blood showed up. I was diagnosed in October 2016 and at the time my GI told me it had nothing to do with my diet, so I lived my life the same way I always did. I've been trying many different meds without little or no results. After my 29th birthday in June 2017 I started feeling more sick and the weight loss had started, I've always been a skinny guy and ever since I lost quiet a bit of weight which has been something that just makes me feel more uncomfortable. I consulted a Homeopath in October 2017 and she started me on the Paleo diet, while researching that I came across your site and the SCD diet which I started in December 2017. I didn't do any of the diets a 100%, but I did start seeing results. I went a bit off the rails during the festive season while traveling but I'm easing into the SCD diet again and plan on going 100% this weekend. UC has caused a lot of stress for me but I've come to accept it and look at it in a positive way. My goal is to eat healthy, put some weight back on and start living a normal life again. I haven't let UC stop me from living my life although it has limited me, but thats all going to change! Thank you for sharing your story and being an inspiration to all of us.