About Me

Leah

I am a stay at home Mom of a wonderful special needs little boy. My son just melts my heart; he's so loving,caring and just full of compassion. I'm glad he's mine. I wouldn't change a thing. He's my inspiration for most of my crafting adventures. We are always making something together - I have great fun with him. I'm married to my high school sweetie. We celebrate 29 years this year. WOW! has it been that long??!! Wait! We've known each other 37 yrs already - WOW! I'm involved with our son's school. I am a published writer of children's books. I am also a lover of writing poetry.

Tuesday, March 29

Hi Again everyone, I told you I would be updating the site. I don't know how many of you are aware of the medical battle that I have been fighting for the last nine years. I have an umbilical hernia and a lesion near my belly button. I also have a tear in the upper quadrant of my abdomen as well as a bone mass. There are also some ribs displacing themselves. I have been experiencing debilitating pain. Yes, the doctors have given me a gamut of medications as well as the many times of "Sorry I can't help you." "I have nothing for you. I can't help you, I don't know how to handle your Osteogenesis Imperfecta ". Yes, while these were, are things that no one wants to hear especially when it is dragging on and on. You want relief, you want to take care of your family, but now your family is taking care of you. My son is almost a teenager how do you think I feel that this has been keeping me from being the Mom I should be? I cannot tell you that it has been easy because it's not.

However, I will say this that even as debilitating this pain has been I will not let it take me down. The pain does knock me down, but I get right back up and fight harder to get the results and answers we seek. I have been in the word and been praying. I also have several friends and family members praying as well. I feel that the direction we're going now will bring us to the finish line that we've been trying to get to. When we get there when the doctors say I can begin training I will be training hard so that my Osteogenesis Imperfecta doctor and I can set up an official 5k to raise awareness for the bone disease that my son and I have. We will continue to do the 5k's and more to raise awareness! Join us, we will let you know when the date is.

Thank you for stopping by!

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Thank you so much for stopping by! I appreciate all your comments. I do read them all. I just wish I could tell each and everyone of you how much you make my day with the notes of encouragement. Thank you!!!