During my pregnancy my ultrasound showed that he has hydrocephalus and vermian agenesis. But the doctors aren't that much concerned about his case that time because the fluids on his brain aren't that much. They are very positive and they even said that he will be totally fine and normal.

When he was born, last April 1, 2016 he had a cord coil that caused a hard time for him to breathe after he came out. He needed a mechanical ventilator to help him breathe right after he was born and it lasted for 3 days. The mechanical ventilator caused an air outside his lungs so he needed to undergo a Chest Tube Thoracostomy to remove it. Imagine how hard it can be for a newborn to experience all of this.

Then he had a cranial ultrasound to check his brain regarding his hydrocephalus. His neurosurgeon wasn't still concerned about his case because his head isn't that big and his head circumference is still on the normal range yet he still has that excess fluid on his brain. We just need to have follow up appointments on her to monitor his head.

We thought that his suffering ended, but when he was brought in with me and try to breastfeed him he won't suck. I tried to latch him for hours but he was just sleeping. Tried to stimulate his sucking reflex and wake him up but failed. Until we noticed that his skin turns bluish-gray and he looks like he had a hard time breathing on his own and he was beginning to become cold.

We rushed and sent him back to the Neonatal Intensive Care Unit. The nurses and doctors checked on him then they told us that he needed again to have mechanical ventilator so his dad run to lend the machine needed because the hospital has a policy that you need first to deposit a specific amount before using any machine need. We don't have that much money but luckily we were able to deposit the amount needed. The doctors said he had hypoglycemia and hypothermia due to starvation.

We tried breastfeeding, cup feeding and bottle feeding on him but he cannot cope with those. The only way he can feed is through tube feeding via NGT.

His pediatrician asked other doctors like neurosurgeons, endocrinologists and even geneticists. But after checking on him still they do not know what was his main problem on why he cannot suck. His case is very rare and complicated.

The doctors thought that maybe he had a hypopituitarism that may cause him to have dwarfism and other hormonal problems, but we need an MRI to confirm.

Only few days left and he will be turning 1 month and he is still at the hospital.

I hope many hearts will be touched by Calvin Kobe's smile in the pic above. Our family are having a hard time to accept his condition right now plus his hospital bills are running that hurts us most. Nevertheless, we need to fight and be strong just like how Calvin Kobe is.

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