Weʼve raised £3,304 to Support Hannah and our family getting care

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Story

Just over a month ago we had our little girl Anwyn and took her home from hospital full of smiles. A few days later Hannah developed a nasty infection that resisted antibiotics, and over the next 3 weeks her health deteriorated rapidly suffering from pain, nausea, dizzyness, blinding migranes and being on the edge of blacking out. She began to really struggle to get through the day as it got worse and each visit to the Doctor meant more medication that didnt help and more worry. We asked our midwife, GP and health visitor for help, but were told nothing else could be done, and resorted to the hospital as things got so bad.

The hospital began treating the infection, but more problems began, crippling pain from suspected nerve damage from her C section left Hannah doubled over, and a few days into her hospital stay she began violent seizures every 15 minutes, she was left unable to feed or hold our little girl and not able to see our other kids as we had to call on the little family support we had to look after them.

Getting to understand what was going on medically has been a real trial, but hopefully we are getting there. It has taken it’s toll physically and emotionally, on both of us. On top of concerns for Hannah’s health and not getting to see our other kids, the help we have is running out. I’m having to be with Hannah in hospital to provide the emotional support to get through this really scary time, as well as feed and care for our newborn.

Unfortunately I don’t get paid if im not in work, and we have the added worry of ‘will we have enough to get through the next month’, let alone somehow manage any after care costs if we can get Hannah home and she continues to need help.

The amount we’re asking for is a total shot in the dark, but begins by helping us know that we can cover the basics this month and anything above the total will go somewhere towards needing any additional time off to help, or additional costs like potential aftercare or childcare while she recovers.

A lot of friends have offered their support and asked what they can do, and the moral support and positive messages really do help, but if you feel like you can give a little to help us through this awful time it really will make things a little more managable and take a little pressure off.

Updates

8

1 year ago

Daniel Jones

1 year ago

1 day to go, and we’re still trying to get help with Han’s seizures.
Finding the help we need has been a battle, with areas of the nhs & social services who are meant to help with this sort of crisis either not knowing or passing us on.
When your life is turned upside down by anything that affects your daily life so much you’d hope that help and advice would be there, rather than told ‘sorry it’s not our area’.
What this means for us is potentially more of a fight to get the right help, and having to pay for it short term.
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1 year ago

Daniel Jones

1 year ago

Hannah was re-admitted with seizures but is back home again and with a diagnosis after seeing multiple consultants. Han has been identified as having Non Epileptic Attack Disorder (NEAD).
More information on the condition can be found here: http://www.nonepilepticattackdisorder.org.uk/non-epileptic-attack-disorder/
We’ve pushed and had a care needs assessment as this condition will change our entire lives, now we’re waiting on the results very much with our fingers crossed that we can get help and find a way to afford it long term.

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1 year ago

Daniel Jones

1 year ago

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1 year ago

Daniel Jones started crowdfunding

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Page last updated on: 7/30/2018 09.52

Supporters

85

Anonymous

Jul 30, 2018

£30.00

Lucy

Jul 24, 2018

£100.00

Michael Whitton

Jul 23, 2018

Sorry to hear about your difficulties.

£30.00

Anonymous

Jul 23, 2018

£10.00

Lolli

Jul 23, 2018

£10.00

Anonymous

Jul 23, 2018

£10.00

Evan & Mel

Jul 22, 2018

Sending love and support to you, Hannah and family. Get well soon from your Canadian Cousins xx