FSHD Connect Conference

SAVE THE DATE! Our next FSHD Connect conference will be held in Washington DC on June 27-28, 2020. Registration will open in January 2020.

FSHD Connect brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. The meeting features talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions address topics to help you cope and live better with FSHD. While you’re waiting for FSHD Connect, you can connect with families and experts by attending one of our dozens of chapter and local support group meetings. Find out if there’s one near you by checking out our chapter directory and event calendar.