All about Titin Protein, Titin Myopathy, Titinopathy, Titinopathies

Variants in the Titin gene are known to cause some heart problems in some people. If you are wondering where to get a good heart evaluation and treatment here is a great resource available for you.

The Children’s Cardiomyopathy Foundation has recognized medical centers with expertise in pediatric cardiomyopathy. A designated CCF-accredited center of care provides high-quality cardiac care and specialized disease management to children with cardiomyopathy.