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I hope your meeting as well as possible and there’s some consensus as to what happens next.

The mental impact of such life changing disabilities is very challenging indeed and can drain every last drop of self-esteem from a person.

Positivity isn’t always achievable in these circumstances. Everyone deals with things in their way and at their own pace, nor is there a right or wrong way to cope with losing one’s mobility, independence and, dare I say, identity. I know I struggled with idea of the latter - I was fortunate to have responded well to counselling.

Had a meeting with the social worker today, which turned into a mini discharge planning meeting. The result was that it was agreed that an application would be made by the hospital for Continuing Health Care funding...

I started using the PEG for nutrition 2 or 3 days after it was fitted. At the moment I am having bolus feeds to supplement what I am eating and also to make sure that I am properly hydrated. That flexibility suits me at the moment. I think I am near the point where I will need to have my medication through it, as well.