Discussions By Condition: I cannot get a diagnosis.

System atropy with half of the body shrinkeing(pleaseee help!!)

I have a birth defect disorder( Hemifacial atrophy) which makes one side of the face muscles,skull does not grow and muscles gets shrinked.One side of the face looks very dissimilar in contrast with others.One side of my body also losing muscles.According to the study,This will mainly occur during the age of 20.Can anyone suggest me on this?Any treatment vailable,Any solutions for this.I am very much worried and concerned.Please anyone help me regarding this.Pleaseeeeeeeee.