Can't imagine what you are going through there, but glad the GOGD helps you a little. Can't answer your questions either friend but I really hope someone somewhere out there can! Feel for you and send you all good wishes. Just posting to say that and keep you top of the recent posts list :-)

I suffer from a crippling form of MS, have done now since 2001. Been a real rough road. When I had my first attack, it hit my motor function part of my brain, which left me in ICU for 4 months, because losing motor function skills involves just about everything yopu can imagine. All your moving parts, eye focusing, dinking , eating , talking, walking, and so forth. Now I have had some great people help and support me along the road to semi- recovery, including all my family, especially my folks, my wife, my 3 teenage daughters. Some days losing alot of my freedom of mobility gets me down, or the inabilty to kkep the complex web of my thoughts in some sort of coherent order. I suffer from high fatigue, just because I have to concentrate hard to do most things, but I refuse to go down without a fight.
Does anyone else suffer from this condition? Which manifests itself in Manic Depressive bouts as well as a by-product? Any ideas to help me or others that suffer from it? RFrom the constant pain? etc etc.
I keep myself as positive as I can, and I can say three things that helped me return from a comatose like state ( not being to eat,drink, walk, talk ) One is listening to endless hours of Grateful Dead ( Dreaming I am back at the Frost or other places, Twirling in the back, grinning and laughing my fool heart away), and a new band called Radiohead ( rather complex music), and learning all about Classical Music, through hours of listening to that as well. It kept my brain thinking at a fast rate, which aided in my recovery.

But like I said, it is coping with the pain now that I need advice about, because exercise is difficult or fleeting, my diet has always been balanced. I am on massive doses of nerve inhibitors, but I am loking for anyting else that might help, especially from the Professional Alternative Medical people, or Traitional Western MEdical People.

Keeping your compass towards the positive is invaluable when passing through tough times. In 1984 I was driving down a small country highway along the upper Sacramento river, not far from Chico, CA. We were going to do a little fishing, see some friends for a few days in Chico and then drop down to Cal Expo and see the Dead.
It was a beautiful afternoon in late May, sunshine peeking through the willows along the river, big ice cream clouds floating by, no one around for miles.
Then I woke up in the intensive care unit.
A drunk driver using the wrong side of the road had hit us head-on. Someone riding a bicycle just happened upon that stretch of road, come across the accident and then rode to a farm house and called it in. This was still in time before cell phones.
My passenger was OK but passed out or knocked out. I was very badly injured and in the process of bleeding to death. The two in the other car were going fast as well. It took them some time to cut me out of the truck and by the time I got to the hospital I was nearly gone. I had an out of body experience in the emergency room, which is a whole other story.
I had many broken bones, numerous other injuries and went through nine surgeries in three weeks. Then there was a long period of rehab, learning to walk and, at age 26, getting used to a new body.
During those months I watched a lot of comedy. I must have seen "The Holy Grail" twenty times! Hung out as much as possible with friends and family who loved me, even though my mouth was wired shut for a couple of months and I couldn't talk. And always stayed on the positive. These days I get around pretty good, though I am missing a knee cap, teeth and most things don't bend like they should.
It is so crucial not to waste precious energy on self-pity or bad thoughts towards others when one is healing. I am sure I never could have made it otherwise, and boy are my kids glad I did :)

Thanks to Marye and the powers that be for allowing this forum to run. It is my hope that some can benefit from it.
Ok, I'll introduce myself, say a few words and then get into what this forum site is about. I'm Fred and a recent cancer survivor. My battle with cancer was long and hard. I'm sure there are lots of folks that have had something bad happen to them that they had no control over. Coincidently, I was diagnosed and had surgery at about the same time Hurricane Katrina messed with hundreds of peoples lives. That being said, there are times when bad stuff happens to good people.Things that people have no control over.... However, there is hope!!!! And that is what this site is all about. WE ARE EVERYWHERE as the old bumpersticker went. So, there are people in this community that have experienced hard times, and there are people in this community that maybe able to help.
This forum is for all. Jump in, tell your story: the good, the bad, the ugly and the positive, share your knowledge, offer advice. For example, I have been through a lot, and I'll post my story soon, but I've also learned from my experience and, if that knowledge can help others going through hard times, then I can give back, and so can others. A kind of Shelter from the Storm if you will.
Don't limit yourselves....Post stories, pictures, poetry, art, anything that may promote help and healing for those in need. Keep on Truckin' or KOT as I like to say. Welcome to the new topic and looking forward to see where this thing goes. Thanks in advance! Fred

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