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Hi Zoony, was approached by Community Matron a couple of months ago it's for my husband. She was going to come out and show me how to use the app on my iPad. Not heard anymore from her about it, have a feeling it's because my husband is very poorly and lots of admissions. Not sure there is a way back for him now, I'm so sad.

The results of any research work may not in the long term directly help you, but it is probably aimed at finding solutions for others in the future who suffer with the same problem.

On the down side your surgery will be receiving monetary compensation for organising these tests within their patient community, on the other hand, if it is not going to cost you anything and it may help others, then why not volunteer to help?

If you find that it becomes tiresome or too much of an obligation, then you can pull-out at a later date.

Sometimes research does not get started for various reasons,but we should all agree to do the best we can to attend,providing we are able to. After all some of our medicine has been been researched by other sufferers,from previous studies!

Oh how I agree with you ,last year my consultant prescribed MONTELUKAST for me ,,,,but I had terrible side effects,,,,I gave it a good try ( for a couple of months) but finaly told my GP I wasn't going to take it anymore ,,,he said " I have no problem with you stopping it "

then this year back at consultant he prescribed me SLO-PHYLLIN ,,( I have to say it told him how good I had been feeling the last few months ) so I gave it a try ,,,,again terrible side effects ,,,so I stopped it after 2 weeks ,

( I certainly didn't want to go through what I did last year ) ,,,then I had a prebooked appointment with copd asthma nurse for a routine check up ,I told her I had stopped the pills, but she suggested that the consultant really wanted me to persevere with it ,and suggested one pill a day ,,,,so ok I thought ,,,,,,again the side effects kicked in so after 5 nights of about 2 hours sleep ,and no appetite ,,,,I rang her again and said I had stopped the pills ,,I don't think she was suprised ,and said well ypthere obviously not for you ,

what I can't understand is ,,,,why change my medication after 20 years and no side effects ,I will be more upfront when I see consultant in august and ask him WHY ,

I don't blame you for dropping medication which affected you so badly but in answer to your final question, obviously the lack of side effects isn't the only reason to stay with existing medication if it's thought a new one would have more benefits for you.

The only number I'm interested in is my percentage of lung function and keeping it steady, which I have done since diagnosis 3 years ago, at 70%. Considering I'm nearly 69 and was stupid (addicted) enough to smoke for more than 40 years I feel lucky it's not much much lower.

I don't really care if I'm classified as having low level COPD according to some figures, or moderate according to others, checking the lung function level and continuing what I'm doing to keep it there as long as possible is my priority

Hi I have never taken part in a clinical trial but I guess if it is to test new medicines it is very worthwhile.

What puts me off is seeing figures for people who have suffered lifelong damage or even death from taking part in trials, but I am sure the vast majority of people are ok and might even benefit themselves with new meds. x

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