DHA is powerful stuff. Consult a physician before
using DHA .

DHA Links

This is the web site
of the parents of Ian Harris, a boy with IRD. It
primarily provides a parental perspective. Ian's
father, John Harris, also maintains an
International email list for parents and caregivers
of children with peroxisome biogenesis disorders.
Given the rare context of these disorders, the
email list provides an important means of
information sharing and mutual support among the
parents and care givers.

IMO, she makes it very clear that DHA is a food
supplement, however it must be administered under
medical supervision including frequent blood tests.
The blood levels of all lipids must be monitored
when DHA is used to treat or prevent disease.

Peroxisomal disorders are a group of congenital
diseases characterized by the absence of normal
peroxisomes in the cells of the body. Peroxisomes
are organelles within a cell that contain enzymes
responsible for critical cellular processes,
including oxidation of fatty acids, biosynthesis of
membrane phospholipids (plasmalogens), cholesterol,
and bile acids, conversion of amino acids into
glucose, reduction of hydrogen peroxide by
catalase, and prevention of excess synthesis of
oxalate

This site was created and is maintained by the
laboratory of Stephen J. Gould at The Johns Hopkins
University School of Medicine. Whether you are a
scientist working on the peroxisome in need of a
good reference site, a physician seeing a patient
with a potential peroxisomal disorder, or a patient
or layperson wanting to know more about the
peroxisome and its associated disorders in simple,
less scientific terms, this site will be able to
provide information and further references.

Once you get to this page scroll down the left hand
side and select Lorenzo’s Oil or Glycerol
Trioleate Oil. In addition to DHA Joey takes 3
tablespoons of glycerol trioleate oil
(GTO). When I get
the chance i'll spell out how we arrived at Joey's
present treatment. It took about 6 years to get it
like it has been for the last six years.

PBD stands for Peroxisomal Biogenesis Disorders.
The PBD project is essentially a charity group
which has been set up to raise funds to support
existing research and future research into
Peroxisomal Biogenesis Disorders.

"This
study is significant because it shows that DHA
added to the diet altered the processing of the
amyloid precursor protein and the accumulation of
its toxic amyloid protein metabolite that is widely
believed to cause Alzheimer's. These and other
beneficial results were observed even when the
diets were changed late in life," said Dr. Greg
Cole, the study's lead investigator. Dr. Cole is
the Associate Director for Geriatric Research at
the VA Greater Los Angeles and Professor of
Medicine and Neurology at UCLA."