Project information

Translation Project

Finding out your son or sons have a life taking medical research condition is one of the hardest things any family will take on. To have no useful easy to understand literature on the condition makes it even harder. This project looks to address this.

Charity information: The XLP Research Trust

Need

XLP is a rare life taking condition. Googling XLP will bring up an array of medical publications that are difficult for any non medical person to interpret - especially if English is not a first language.

Solution

By translating family frendly material from English into other languages. We have already undertaken this for some lanaguages and the response back from XLP affcted families has been 100% supportive.

Impact

It will help XLP families around the globe to face up to the long road that they have ahead. It will bring comfort that they are not alone in their struggle. It will help increase the awareness and knowledge of XLP globally.

Risk

Accuracy of translation is everything. We believe that we can get around this by both appointing a professional translations company and the subsequent peer review.

Reporting

By email update if they allow. The fruits of their donation will appear on our web site.