Feeling ill with ulcers

9 messages in this subject.

Hi,
I have always suffered with mouth ulcers & so have my parents. Resently Iíve had one after the other & itís dragging me down big time. The pain is horrific & Iím feeling poorly with it. Tired, moody, swollen glands in my neck. Find it difficult to talk, eat etc...
Seen my doctor/had bloods done to test for any deficiencies & they were all normal. Doctor gave me a mouth wash & I take pain killers but they donít seem to touch it! &#128542;

Sophie 26 January 18

I have had mouth ulcers for about 3 years. It took me about 2 years to get a diagnosis of Behcet's. My current ulcer is under my tongue in the back almost to my tonsils. It is very painful and totally exhausts me. My body is hurting all over and I am depressed. I try to over come it, but it is hard, when I don't even feel like getting out of bed.

Brenda 48 21 February 11

Dom - I found the diagnosis helpful in that the GPs took my symptoms more seriously than before. I use Betnesol mouthwash when the pain from the ulcers gets really bad and have occasionally had steroids for short periods of time. The consultant I saw told me to rest when the joint pains and fatigue are bad and this helps them ease more quickly whereas before I just used to try and keep going as I felt like no one really believed how lousy I felt and the more I did the worse it got. When there are few outward signs I used to think other people would think I was just malingering and tried to keep going regardless. Now I get less episodes of the joint pains and fatigue as I pace myself better. I always have ulcers but, as I said above, watching my diet does help and generally the ulcers are not as bad as they used to be most of the time. The other thing I avoid that I forgot to mention is mint in any shape or form, that really aggravates the ulcers. I use a mint free toothpaste and I think that has made quite a difference too. Hope something here is of use to someone.

Linda 6 September 10

When I was at boarding school I suffered terribly wih mouth ulcers that always lasted quite a long while, and my infirmarian nun at the school made me eat a block of live yeast every day, which made me feel quite sick. the block was about 2" by 1" sqare, but I have to say that it evenutually cured my mouth ulcers for good and I have not ever had one since.

NIcola Devlin 31 August 10

I have been diagnosed with Systemic Lupus but sometimes think what I have sounds more like Behcets. I have a recurring ulcer at the side of my tongue and going undernearth. It is a huge crator and can last over two weeks. Utter misery. I also get other very deep ulcers on other parts of my tongue and the roof is sore too. My mouth is so very dry all the time - has anyone got any ideas to help my dry mouth. I have to keep chewing gum in my mouth even during the night. I am going to try some of the ulcer suggestions on this website.

Eneri 31 August 10

Linda - recurrent ulcers can indeed be indicative of an auto-immune disorder and are frequently found with Behcet's, Crohn's, Lupus, Sjogren's... etc. It seems to be a matter of luck whether or not your doctor knows about these things. For you, how helpful has it been receiving a diagnosis of Behcet's in terms of managing it?

Dom Walton 31 August 10

In all the articles about mouth ulcers they never mention Behcets Syndrome. I had severe mouth ulcers from about the age of 7 and also felt achey, tired and generally unwell. It wasn't until I was 37 and moved to a new GP that I was diagnosed with Behcets. It is quite rare and I don't think a lot of doctors even know about it but I was lucky with the GP who recognised it straight away. Do have a look at the Behcets Syndrome Society website and see if any of the other symptoms fit. It can't be cured but symptoms can be treated and just having a diagnosis after so many years can be helpful. I have also found that diet can help, for me avoiding fruit, tea and spices helps to reduce the amount of ulcers (I can have up to 20 at a time) and the length of time they last (at least 3 weeks usually).

Linda 31 August 10

For me it depends on the location and cause of the ulcer- but you are not alone. Ulcers on my cheek or tongue caused by biting do not usually cause too much problems except for being an annoying pain. However ulcers that appear on my gums or inside my lips cause a lot of extra symptoms, and i end up feeling as though i have mild case of the flu. I get headaches, painful swolen glands in my neck and face, sore throat and i generally ache and feel tired and sick of a couple of days. Also, they can be so painful that i just can't eat, drink or talk for a day or two, despite taking strong painkillers like codeine. Basically, we are feeling our immune systems responding and going into overdrive in response to the infection in our mouths. I am currently on a very strong painkiller called OxyContin (extended release oxycodone) for an un-realted condition, and even that is barely taking the edge off the pain in my mouth and face from an ulcer that appeared yesterday.

Aza 31 August 10

Hi

I suffer from a single ulcer located at the rear of my throat on the left side just before the tonsil every so months, and apart from the pain it causes, I also feel extremely unwell with it. I get headaches, fatigue, feeling sick and just generally feeling absolutely rubbish and it lasts for the time I have the ulcer.

Does anyone else experience these additional symptoms when they get an ulcer?

Gary 25 August 10

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