Looking for other parents….

I have a 7 year old who has been suffering with headaches/migraines for about 3.5-4 years now which is so sad because she is just so young. I am looking for any other parents who also go through this. I personally have had random headaches through out my life but I’ve never had migraines and it breaks my heart as a mommy to see her deal with this and I can’t even understand how she feels. I have family history (parent/sibling/aunt/uncles/grand parents)and my husband has had migraines occasionally through out his life but nothing severe or recurrent like our daughter. There are days, like today, where I just sit and cry because I don’t know what to do for her. I can’t sympathize with her because I don’t understand, and become so frustrated because I just don’t understand.
She see’s a neurologist, has a daily medication regiment, has had MRI’s to rule out anything severe, we’ve done diet jouurnaling to see if there are specific triggers, we’ve done journaling to see if there is any specific day/time/month etc that triggers it and we’ve come up with no specific answers.

I’m just trying to find support because no one around here has ever dealt with children with this issue…..

Thank you for reaching out, it’s very difficult to see our children in pain, I’ve been there. I’m sure other parents will be along shortly to share their experiences with you.

Migraine is thought to be a genetic neurological disorder and it seems you have a fairly strong family history. Having daily migraine is exhausting and frustrating for both the patient and caregiver.

You mentioned you kept a migraine diary for your daughter, but may I ask how long you did it? Keeping a very detailed diary for three months should help narrow down triggers and any patterns our attacks have. When my son was younger, “we” kept a detailed diary for three months and I have to say it was not fun. But I’m so glad we did! We were able to determine his strong migraine triggers are dark chocolate, nitrates, dehydration, skipping meals, and irregular sleeping patterns. It is time consuming, but very worthwhile. Here is migraine diary information; https://migraine.com/blog/keeping-migraine-diary-basics/.

We’ve changed the daily medication again and added another for at the onset of them to hopefully help stop them sooner. It seems like whenever I think wow it’s been a week or even more exciting it’s been two weeks suddenly she has a pretty bad one. I really hope that we can get them under control and well managed. This is frustrating for sure.