Living a long and happy life in spite of having ALS/Lou Gehrig's disease

#voice

The comedian Eddie Izzard does a hilarious bit about The Church of England offering it’s parishioners a choice of either cake or death (https://www.youtube.com/watch?v=BNjcuZ-LiSY). Not such a tough choice, as it turns out. With ALS, you have a choice of either drunk or angry. Not much of a choice, as it turns out. And really not a choice at all, it’s more the luck of the draw as to which you end up with. Either you find your speech slurring when you try to talk, and you sound drunk all the time, or you can’t take in enough air to get your words to come out without great effort, making you sound angry when you try to talk. Either way you end up really pissing people off. Even those closest to you who you think should understand your struggle. I’m not sure why they seem to forget that, just like every other muscle in your body, you may have little to no control over your voice. But, it happens. People will get frustrated and forget. Just like we PALS (person with ALS) sometimes forget that we aren’t the only ones who get frustrated when dealing with this disease day in and day out. I don’t know why we seem to forget that we don’t hold the copyright on frustration. But, it happens. Just remember when this happens, to give each other a break, and maybe share some cake.

Advertisements

Search for:

Archives

Archives

Follow Blog via Email

Enter your email address to follow this blog and receive notifications of new posts by email.