Currently Reading:

Hey Zipsters!

Search

Recommended Links

Check out:

June 24, 2008

My cancer by the numbers

I'm an engineer by education, so sometimes I think it's easier to explain my cancer experience by the numbers:

I've had Hodgkin's disease once, Breast Cancer twice. I was a 20 year old college sophomore, fighting my way through cancer for the 1st time. To diagnose the Hodgkin's, I had every major organ in my abdominal region biopsied, a section of my hip removed, my spleen removed, and for good measure, I let the doctors take out my appendix too. To treat the Hodgkin’s, I had 18 weeks of radiation and 9 rounds of chemo therapy. My chemo regime had 4 drugs. I still have 21 little blue radiation tattoos used to mark the radiation field on my body. I lost all my hair and lost a ton of weight. It took close to 3 years to battle through the Hodgkin’s.

At the age of 33, I was diagnosed with breast cancer for the first time. I had one lumpectomy and 5 intense days of Mammosite Radiation. For two years, I dealt with horrific side effects from “the anticancer drug” Tamoxifen – dry eyes, night sweats, bone pain, weight gain, migraines, insomnia, fevers… Sometimes, the cure is worse than the disease. Last November, I was diagnosed with breast cancer for a second time and I opted for major surgery - a double mastectomy. I had my thyroid removed during that surgery too. In total, I had 3 separate courses of radiation, 1 course of chemo, 8 major surgeries, and 1 bone marrow biopsy. Whew…

I'm walking proof that super glue and duct tape works wonders.But in case you want to know... I can still hit a golf ball 250 yards on a good day... bad day, maybe 235.

When I was diagnosed with my Breast Cancer you where truly my role model. You had been through Hodgkins and Breast cancer and hey I only had one bout with cancer. Then a year later I when I was diagnosed with Thyroid cancer you were my inspiration!!!

I'm totally in awe of your courage in battling The Big C, not to mention your driving distance. :) I popped one about 270 earlier this year, but mostly I'm lucky to make 220. At 60 years old and at sea level, that's not too bad. :)

WOW Alicia: you are awesome. Your one of God's angels. I am following you. I've survived breast and pancreatic cancer and know there are ways to help cancer patients and their care-partners, families, and friends live and not die from this disease.

I love your blog and your outlook. Yup, life is wonderful and perfect as it is. I'm convinced living with the attitude of acceptance, presence, and trust, all of us can find the beauty and joy in any given moment of the day. Not only that, we can find ways to laugh and smile with each other and not let the "nay sayers" bring us down.

I'm writing a new book called "Cancer and the Healing Power of Play" with another cancer survivor. We are grabbing life by the horns and making music.

One of my secrets is to love everybody, even myself, evryday. I find love life giving.

Confession - I haven't had the time to get to your blog before tonight. Kick me in the a$$ next time you see me on twitter!

Realization - Everything that happens, happens for a reason.

After the bad news, or potential bad news, we got today about Robin's 4 yr old niece and the possible "L" word, we're more than a little broken up. However, reading your path, and how to walked down it successfully, has given us strength.

One thing I love about positive people, like yourself, is you help guide and motivate people to move down the path they may be stumbling on. Not everyone has the inner strength, or knows how to draw on their inner strength, until they see someone else has done it, successfully.

Thank you for your wonderful inspiration, and amazing ability to put it into words!
-Matt

Am really kinda speechless... All I've had was a little Lymphoma. Compared to your experience, mine was just a 11 month vacation with a few cloudy days. Damn girl...good on you and all the best...you deserve it.
- Jason (aka Ded Ryzing)

Hello @Stales! I haven't had a chance to actually check your blog yet, but tonight is the night.

Wow.

And here I thought that my mom's 2x BrCa survivor stories were bad! She would definitely agree with you Tamoxifen is a tough one to take...and it's frightening to think that many doctors don't consider it "chemo." Even my friend's father who helped develop that drug will agree...despite all of the help that it does for women with ovarian or breast cancer, we can do a lot better.
Actually, that's what I'm working on...I work on oncology drug development at Genentech. Here's hoping that all of us in cancer biotech succeed in our mission to defeat cancer!
Best of wishes...