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My name is Raelyn Hollins. I am 2 years old. When I was born the doctors thought that I had a seizure, so I was sent to a bigger hospital to be monitored in the NICU. Many tests were performed on me. A geneticist came up with the diagnosis of Rubinst...

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I found out September of 2015 that my son has Rubenstein Taybi syndrome. He's 4 now, & I hope to connect with others. I love to know how families can help their kids with this condition. He's up to 3 words & 3 syllables. We haven't been able ...

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Savannah was born in 2003 our only daughter had finally arrived. We already had two very happy and healthy boys 9 and 3 years older than our daughter. Savannah developped slowly was never a huge eater and was a few montlhs behind in her goals t...

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I gave birth to a baby boy 14 years ago. A few hours after birth I was informed that something was severely wrong with his heart( DORV, VSD, Bicuspid aortic valve, 80% blockage of the Aorta)- Complex Congenital Heart Defect.. Rare... 20% success rate...

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0 people with Rubinstein-Taybi Syndrome have taken the SF36 survey. Mean of Rubinstein-Taybi Syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey