August Chat Stew

Post by xanthepants on Aug 29, 2016 12:32:32 GMT -5

We went with MIL to the state fair yesterday. At one point we lost her for 45 mintutes because she ran out to poop. (can happen to anyone- ok). She absolutely refused to get a scooter or a wheelchair because she did just have a surgery in april on her knee and I know her recovery has not gone well, we offered to pay, nope. Pride thing. We stopped 12 times to take breaks walking back to the car, I kid you not. I was carrying a sleeping kid and a bag full of stuff in the heat and did not need to stop. Good times!

Post by summergirl1211 on Aug 29, 2016 14:23:16 GMT -5

We went with MIL to the state fair yesterday. At one point we lost her for 45 mintutes because she ran out to poop. (can happen to anyone- ok). She absolutely refused to get a scooter or a wheelchair because she did just have a surgery in april on her knee and I know her recovery has not gone well, we offered to pay, nope. Pride thing. We stopped 12 times to take breaks walking back to the car, I kid you not. I was carrying a sleeping kid and a bag full of stuff in the heat and did not need to stop. Good times!

Ah HELL no! That's ridiculous! I'm so sorry xanthepants. It was miserably hot yesterday too. It still looked like you and Coco had fun though!

Post by bliz1712 on Aug 29, 2016 19:10:15 GMT -5

Oh my wwyd and sort of a MC. I sent h a sext picture frid. And for some reason he just sent it back to me. The app we message each other I have it set up to show the message on the screen when the screen is turned off. V being nosey heard my phone and looked at it and is now asking what it's about. Eeekkk!

Post by starfishy on Aug 29, 2016 20:19:24 GMT -5

Oh my wwyd and sort of a MC. I sent h a sext picture frid. And for some reason he just sent it back to me. The app we message each other I have it set up to show the message on the screen when the screen is turned off. V being nosey heard my phone and looked at it and is now asking what it's about. Eeekkk!

Yikes! Is is full body? Can you say it's a before pic for losing weight. I don't know. Tough spot.

Post by somethingcleverer on Aug 30, 2016 8:23:41 GMT -5

Speaking of boobs... Yesterday Aubrey was napping in the car and I carried her into tae Kwon do. When I got back into the car at the end I noticed that the foam insert I use to even myself out was pushed over to he middle of my chest 😬. I talked to people there and didn't notice for the whole hour the class was going!!! I swear this stuff always happens to me. It happened again at the end of the day when Tim was home and I showed him and told him about not noticing earlier and we had a good laugh.

Post by bliz1712 on Aug 31, 2016 10:02:33 GMT -5

Ugh, clearly I need to do something.... In 6 days I've been asked 2x when I'm due or if I'm pregnant? I carry all my extra weight just in my midsection so shirts and jeans can really accentuate it. Great self esteem booster! I was probably a bitch to them, but both times I replied with "No, I'm just Fat!!"

Post by xanthepants on Aug 31, 2016 10:40:43 GMT -5

bliz1712, You are so not fat. Who are these people? Seriously!?!?!? You are tall and thin. Perhaps they think that because E is hitting that toddler age you might be thinking about having another so they are putting it out there. Stupid people. Stupid stupid people.

Post by trixi282 on Aug 31, 2016 22:56:48 GMT -5

So I feel like all I do is complain lately, but seriously. As soon as things feel normal something (even small) happens again!

E had her 15mo check up. And overall things were good, growing steadily, happy, social, ears look good from Peds perspective (post tube surgery). Obviously still not eating, but we know that will take time. Then doc looks at her throat... It's red and irritated, so she does a culture. Quick culture comes back positive for step throat! Same damn thing happened to J at her 4yr appt! So no shots, H has to bring her back for those.... J never got hers either, so I thought we could maybe just add J to that appt and double duty. Anyway....

Then doc brings up something that I've mentioned to H recently... E has a little bit of form tissue around her breast areas. Well since she was on ECMO and had a big blood transfusion can sometimes have side effects. She also had the vulvar adhesion which we used a hormonal cream for, which could have also had side effects from using.

So ped ordered a hand x-ray to check for premature growth. H said she told him the x-ray is a way to see if her bone structure her hand is developmentally 15 mo or more advanced, which can be an indicator of early puberty.

Seriously WTF.

So they do an x-ray. Tech says yesterday it looked good, they would have the radiologist look at it further for results. They call H last night and say he has to bring her back for another x-ray.... So he did today. Who knows when we'll get those "results".

Poor kid can't catch a break.

Though her ped did say if it's showing signs now for this early puberty, there are things they can do to slow it down or prevent it somehow. I'm just so over this. I know there are tons of people who have it worse than us, but it's still insane the amount of crap we've dealt with! And poor E has had so much radiology in her short life already, it's ridiculous.

Post by roo1582 on Sept 1, 2016 6:24:53 GMT -5

trixi282 - Big hugs!! I'm sorry you have more on your plate to deal with. You really can't seem to catch a break. Hopefully the strep clears up quickly and E feels better soon. I also hope the second set of x-rays comes back clear so you don't have to worry about it anymore. Hugs

Post by xanthepants on Sept 1, 2016 9:32:33 GMT -5

trixi282,oh girl. Seriously? I'd be throwing something right now. I have to have Cosette on that hormone cream indefinitely now since the adhesion keeps coming back. And I'm terrified of the side effects too. I'm sorry that E has to go thru more xrays. That just sucks.

Post by tribute17 on Sept 1, 2016 9:34:20 GMT -5

I'm sorry trixi. It does seem like you can't catch a break with her. Maybe she will pay you back and be a super easy teenager? I hope everything comes back clear and she gives you a rest. And on top of it all of the work travel, it has to be tiring. Hang in there.

Post by summergirl1211 on Sept 1, 2016 9:37:25 GMT -5

trixi282, oh man. I'm sorry that you have another thing to worry about with sweet E. I don't blame you at all for being frustrated, and even though you always take things in stride it's totally okay to vent here! I hope everything comes back fine, but if not, we know she is in good hands. Sending you big hugs. I really really hope things calm down soon for you.

Post by somethingcleverer on Sept 1, 2016 11:22:54 GMT -5

trixi282 I hope it turns out to be nothing for poor Emme. Maybe once the hormone cream clears her system it might go away??? I'd be so frustrated too. Having constant health issues is so frustrating, I'm sure it feels never ending with Joey and Emme catching colds and having other problems on top of it. Big hugs girl!!!

Post by trixi282 on Sept 1, 2016 13:13:57 GMT -5

Thanks ladies, for letting me vent. Its totally a pity party for one over here lately....

xanthepants, that sucks your still having to use the cream for Coco. That can't be easy. I hope hers resolves again. does your ped have any insight it keeps happening?

I'm assuming the doc checked E again to be sure it hasn't become a problem again. And I don't think this growth stuff is from just that, I think hers is a combo of that and the transfusion with the ECMO too. But it's always a concern with the hormonal creams. I hate that it's the only choose of treatment... There has to be something else out there, right?!

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