RARE INSIGHTS

On the eve of our big launch, we are in a reflective mood; looking back over the last few months to get us to this point, is emotional.

The stories that have been shared with us in writing and over the phone have been truly moving, as are the feats achieved by the RARE community whether they be directly or indirectly affected by a rare disease.

One thing is clear, there is a strong desire to be heard and represented!

Our vision is simple, and its one of a #RareRevolution -"To bring about a dramatic and wide reaching change in conditions and attitudes"

When Michael McGrath, (named as one of Britain's most influential disabled people, Power 100, 2016), says this about the launch edition you can't help but feel proud!

“In helping to raise real and hopefully lasting awareness of RARE diseases, this special launch edition of Rare Revolution Magazine is not only packed with information but its story-telling style is engaging, informative and inspirational. To be featured is an honour. Providing a platform that not only gives hope but also stimulates interest and broadens knowledge is refreshing. I am proud to be part of this growing community of RARE advocates that not only care but also want to champion change – bring on the #RareRevolution!”