Scroll down to find the volunteer support group facilitator in your area. Groups are listed by state or country If you have any questions or concerns please email us at: sjsupport@gmail.com

Please remember that facilitators are volunteers. Families that have either had SJS or had a family member with it. Please be kind to them as they are doing this job out of the goodness of their heart.

If you reach a number no longer in service please contact us at sjsupport@gmail.com so we may update our records.

United Kingdom

Important notes for Voluntary Support Group Facilitator: Not every group does the same thing. Each group may have different results because of the individuals involved. Patients will receive encouragement by meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with the link to the SJS Fact Sheet

The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider. Note* Facilitators opinions and views are not necessarily those of the Stevens – Johnson Syndrome Foundation. Please contact us with questions or concerns.

Welcome

The Stevens Johnson Syndrome Support Group originated in May of 1995. The Group's purpose is to provide emotional support for people with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis.

August is SJS Awareness Month. Please visit our facebook page to help spread awareness of severe allergic drug reactions. Find out about Steven's Johnson Syndrome before it finds out about someone you love.