Frank LeFever writes:
I am a neuropsychologist with a stronger "physiological" focus than
most neuropsychologists. Currently I'm studying variability of
symptoms in various disorders: chronic fatigue syndrome, Lyme disease.
fibromyalgia, post-concussion syndrome, MS.
I am asking people who experience changes in severity and/or pattern of
symptoms from day to day to monitor changes and report them to me.
Most useful would be daily ratings over a period of 1-2 weeks or more,
but it is possible that "one-shot" ratings can contribute something.
You can report on more than one symptom, but please rate them
separately: they may or may not parallel each other in their
variability. My special focus is on "cognitive" symptoms (e.g.
concentration, memory) and on "lethargy" (fatigue, inertia,
decreased drive, etc.), but believe it is important to see how
these relate or do not relate to others (e.g. pain).
For a given day (identified exactly by month and day of month, NOT
day of the week), rate symptom(s) as:
(1) worse, better, or about the same as usual
and (2) worse, better, or about the same as day before.
Identify yourself as little or much as you want, but tell me
(1) age
(2) sex
(3) diagnosis
(4) possibly relevant history (if concussion: more
than one? dates of each?)
(5) geographical location (zip code or phone area
code)
PLEASE DO NOT POST REPLIES! IF YOU BELONG TO SUPPORT
GROUP,PLEASE RATE THE DAY BEFORE YOU HEAR WHAT OTHERS SAY!
To be useful, ratings must be independent of possible influence
of responses by others.
email me directly OR, send letter/card to: Monitoring Project
Box 199
Thiells, NY 10984
If you want feedback on results, tell me how you want to get them.
F. Frank LeFever, Ph.D.
New York Neuropsychology Group