Tag: Event

Vancouver Rare Finds a Heartwarming Success! A huge thank you and shout out to all the wonderful chefs, mixologists and brewmasters who gave of their time and craft on April 8, 2017 to make Rare Finds Vancouver a heartwarming success. Over 180 guests were welcomed to the Sheraton Wall Centre in downtown Vancouver to experience…

Rare Disease Foundation at Vaisakhi Parade in Surrey BC Bill, Rani and Manroop Toor invited the Rare Disease Foundation to help them host a hospitality tent on the Vaisakhi parade route in Surrey, BC on Saturday, April 22 amongst 400,000 revellers. It was a big success and we’ll be back in 2018 with a bigger…

Fantastic inaugural Tamarack Ottawa Run Weekend for the Rare Disease Foundation Runners! Sarah-Dominique Jauron Belanger and her team of 17 runners took part in the annual Scotiabank Charity affiliated Tamarack Ottawa Run Weekend, with many of them running a half-marathon and one brave soul, Damien Grellet, running a full marathon! They collectively beat their goal…

The Rare Disease Foundation is excited to be hosting and partnering with a variety of organizations across Canada to bring Rare Disease Day events across the country. The theme of this year’s International Rare Disease Day is ‘Research’ and we couldn’t be more on board with the theme! Thanks to Shire Canada, the Rare Disease…

13th Annual WORLD Symposium takes place February 13-17, 2017 in San Diego Each year, WORLDSymposium hosts a scientific meeting presenting the latest information from basicscience, translational research, and clinical trials for lysosomal diseases.This symposium is designed to help researchers and clinicians to better manageand understand diagnostic options for patients with lysosomal diseases,identify areas requiring additional basic…

A key event in the rare disease calendar, the Cambridge International Rare Disease Summit brings together academia, healthcare, industry, business, patient support groups and more. It is a chance to build the future of rare diseases and establish best practice in research, treatment and care. Check event website here David Cox

Our annual fundraising and awareness building Vancouver Gala a month ago. Bringing together our rare disease community, our supporters and our friends resulted in a fun night that will let us continue our work across the country. Many thanks to all those that donated, attended, volunteered and contributed! The evening of April 23rd 2016 brought…

In partnership with the Regroupement québécois des maladies orphelines (RQMO), we are getting the voice of the rare disease community heard! Join our Thunderclap campaign for to make a huge impact on February 29th, International Rare Disease Day so that it will trend on social media! With the help of co-ordination of Thunderclap, all of…

The Rare Disease Foundation In partnership with its Resource Network volunteers, a variety of community partners and through the sponsorship of Shire Canada, the Rare Disease Foundation is excited to announce seven separate Rare Disease Day celebrations across Canada. Each event is an expression of a local rare disease community and reflects the connections between…

As in a scientific meeting where researchers and students present their research on a poster, during the Rare Show, people who live with a rare disease or their caregivers will present their rare disease on a poster. Rare disease patient organizations will also be present and some researchers/students of the IRCM will present their research…