Frontotemporal dementia : caring for the caregiver

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Abstract

The literature regarding the care of persons diagnosed with frontotemporal dementia (FTD) is limited at best. This report will serve as a compilation of multiple caregivers’ personal experiences with loved ones who have been diagnosed with FTD. The report will include a brief review of the literature, as well as five case summaries describing caregivers’ experiences with various clinical signs and symptoms, behavioral and medical treatments, and workable strategies. The report was designed with the purpose of providing a comprehensive and relatable resource for future caregivers. Caregiver participants were referred to the current project through an ongoing research study at the University of Texas at Austin. The author interviewed each caregiver individually and recorded the interviews for transcription by a trained undergraduate student. Interviews consisted of questions designed to guide each participant through their personal experiences with their patient. The author compiled the responses into a comprehensive and manageable guide that may be used by others as an educational tool to further the understanding and care of persons diagnosed with FTD.