What expereinces are there after stopping 800 mg of Votrient?

I have been on 800 mg for 5 years and tumors in lungs and lymph node have shrunk to nothing. Minimal side effects, but enough to make me want to stop.Anyone who has similar experience and has stopped taking it... What has been the result?

Responses (2)

cgr11; being as long as you have been on it I would say the doctor should drop your dose by 200mg each time as tolerated by you but THIS HAS TO BE DONE WITH THE DOCTOR'S HELP YOU NEVER GO OFF OF A MEDICATION AND MORE SO one that needs tapering down on. here is a copy and past from the drug.com site of decreasing the dose again not without talking with your doctor and check and see if there is a strength lower than 800mg they don't recommend breaking these tablets due to the way it is released so call your doctor. But here you have the company's recommendations. best of luck to you.Chuck1957 ((((Dose Modification GuidelinesIn RCC, the initial dose reduction should be 400 mg, and additional dose decrease or increase should be in 200-mg steps based on individual tolerability.

I have been on Votrient for 8 months. Dose lowered from 800mg to 600mg. I take all pills before bed. Side effects minimal. White hair. Some diarrhea. Tumors in lungs shrinking. I was happy to see you have been on it for five years. Opdivo now approved so may be great option. I am at Mayo. Great place.