The BDSRA has had a change of face with a new logo. As most of our literature was newly printed last year, you may see the ’old’ and the ’new’ in 2014. Please get behind the National Batten Disease Awareness Day on 31st March with plenty of ideas in this issue of how you can help. Just one passionate deed will inspire a flow of others—like an old saying “if you have two pennies, give one away”.