When I was diagnosed with POTS and IST and Fibromyalgia I knew that there was something causing all of this misery. And I was right! Ll of my research brought me to a POTS diagnosis and when my neurologist told me that I had nerve damage and that if we could find that cause of […]

Ok, so I had birthday cake and pizza at the beginning of the month and truffles and Chinese on Valentines. So what? So I think I have finally learned that I have to plan for those times too. The only way that I know of to avoid take out or being surprised with sweets to […]

I am really tying to understand the whole nerve damage thing. Apparently while nerve damage can be caused by diabetes there are other blood sugar problems that don’t show up on tests (or the right tests are not being done) that can also cause damage to nerves. This is the reason that I started to […]

After so many years of being sick and knowing that something was very wrong with me, I finally found a doctor that did not dismiss me out of hand. Actually I can thank my GP for referring me to a Neurologist that had no idea of what to do with me but he knew one […]

Ok, so I have POTS, IST, Fibromyalgia,chronic myofascial pain,hypothyroid, nerve damage which is causing the POTS and IST. All of that means my autonomic nervous system is’t working right. When I stand up my heart races and my blood pressure rises then drops so sometimes I drop with it. I don’t pass out because i […]

I am so lucky that I have Ralph. I know that he is just a gift from heaven. He just came at a time when I needed him and had the perfect disposition and work ethic to become my wonderful service dog.He retrieve all kinds of things, remote,phone,purse,clothes off floor, laundry from dryer into basket, […]

Do you take for granted your ability to get up shower and get dressed? how much energy does it take to put on makeup and style your hair? Can you stand right up from bed and just walk to the bathroom? Can you stay up long enough to get some coffee or let out the […]

Not me that is for sure!. My parents gave me some money back in December to buy a new recliner because I spend so much time in mine and the spring broke so it really hurt to reach the button bang it in and then rock the chair to get it to recline. So off […]

I must have a intestinal bug because my gut is just so unhappy today. I finally got some relief from drinking some homemade ginger tea but every time I dare eat it comes right back. I am so achy it makes me wonder if I am coming down with something more. With all this lovely […]

were never published! I just started a new blog here and was ready to start posting again to this blog and realized that most of my posts were just saved to draft so I will update them and publish them today.If the information is not something that can be updated I will post it with […]