After the Primetime: Medical Mysteries show on ABC, there was a great flurry of activity in the Morgellons world, then everything went quiet. Is Morgellons losing favor with the media? Here’s a run-down of current and upcoming goings-on in the world of “Morgellons.”

The Morgellons Research Foundation lost half its board members and its only scientist in a dispute over accounting and the leadership style of Mary Leitao. The three primary members of the MRF remain: Leitao, Doug Buckner and Ken Cowles. William Harvey, a big Lyme fan, steps in as new chairman. Will the MRF be able to recover from this schism? So far nothing has been heard from them, other than the Stalinesque purging of their web site of all mention of the former members.

The former MRF members formed the New Morgellons Order. This unfortunately named organization quickly lived up to its name by appearing on the Jeff Rense radio show, which normally features UFOs, Chemtrails, Anti-Zionism, New World Order and other conspiracy theories. Can the NMO be taken seriously? Will the upcoming two day Morgellons Festival help?

LymeBusters message board, closely affiliated with the MRF, forbids all mention of the MFR/NMO split. Anyone who even brings it up is banned, and all their posts are deleted. Discussion proceeds at a reduced pace, with Lysol Toilet Cleaner the current popular “cure.” Can Lymebusters continue under the oppression of censorship?

George Schwartz says on August 13th: “We have developed effective treatment for the “Morgellons” condition and have isolated the thread-forming stage of the organism. This will be presented at an intl meeting and there will be a monograph and CD of the presentation within two weeks. After that time, our group will be free to speak about our treatments and discoveries. With all best wishes. GR Schwartz MD“. Schwartz recently had his license revoked for illegally percribing narcotics. His web site claims to treat opiate (heroin) addiction with a 100% success rate, as well as making other dubious medical claims including his last Morgellons theory that Morgellons comes from bottled water from France. I await his monograph with interest.

The Union Square Medical Associates claims to be treating “hundreds” of Morgellons patients. USMA is where Dr. Raphael Stricker and Nurse Practicioner Ginger Savely work (both are members of the MRF). For the past eight years the USMA web site has focused on peddling Viagra and weight loss drugs, as well as a number of unusual therapies. Why does it not advertise the Morgellons treatments? Do they think it’s just Lyme? Someone from their office said “you really should keep your mouth shut, because in the not too distant future, you will be sticking your foot in your mouth.” I await this with interest.

Professor Randy Wymore breaks with the MRF. Wymore has been the reason Morgellons has been taken seriously by the mainstream press, and his disassociation with the MRF is a blow to their credibility. Wymore wants to continue his research, but his startup money will run out soon, and results so far have been inconclusive. Will OSU fund any more research? Will Wymore continue?

The CDC has formed a task force to see if Morgellons is a distinct disease. Since the CDC aims to nip new diseases in the bud, you would think they would make a determination fairly soon (if there IS a disease, if there is not, it might take longer). The involvement of the CDC has been a big press talking point, and their initial report will be very interesting.

102 Responses to “Coming Attractions”

All I have ever wanted (which is pretty delusional thinking on my part, frankly), is for all the suffering to stop. I can’t envision it, considering the real source of the problem for the majority of these folks, and their resistance. I know what they’re going through is horrendous. If it were awful enough, it just seems like they’d give up and try what they were told to, to begin with. I know the rigidity in their beliefs is impermeable, but knowing what they at risk of losing, and what so many “have” already lost, I just can’t fathom holding on that tightly to something hideous, and letting it rule everything. I’ve often said that I don’t think this is anything new, but it’s hard seeing it in anybody. We’ve not been privy to anything like this before, and I doubt we would be, if not for “Morgellons disease”. Well, there have been other message boards, and there still are, even off-shoots of this. It’s not a real disease, but I know that people are going through unbelievable circumstances, and that they think, for certain, it is. Many sound as though they never intend to ever see another doctor for anything. Many don’t believe anything their doctors say, who do still go to them. It all makes me very sad, because I don’t see any solution in sight for these people.

MAF,
Your first statement disproves your first statement. Most Morgellons believers don’t appear to be able to tell truth from fiction. I think you would be surprized how many people read this blog, and who they are. Why do you come here begging for information you’ve already been given numerous times? Why do you have so much trouble accepting the truth? Do you think you have Morgellons?

An upcoming 2-day Morgellons Festival? Hmmm….I’d like to go to see these people and to see if they “really” are infected or not. Wonder if Greema and Cliff will be there? or Ant, Patti or Kerry? I bet you 100.00 not a one of them will be. Just a hunch…..

Michael,

I’m sorry to just now being seeing your post/comment addressed to me via the last page of blog. You said something to the effect of fiber optics and me proving it., for one thing, the articles/ hyperlinks I post are self explanatory and I wont waste my precious time (what lil I have left due to the silcone valley dolls and the biochemisty bubbleheads stabbing me with their fibers) explaining/paraphrasing them for anyone.

Maybe I can’t explain everyone of them, so? But I do know this….I can tell if it effects me or not. I do “get them”. You seem to be covering something Michael. You dismiss everything I post just about.

Hey, did you see yesterday re: the stocks, that LUCENT had the highest activity? Hey Do you have stock with them? Is that why you get so PO’d when I post the truth?

Oh, no? Then why? I could post you a plethora of reasons and links why I think there is fiber optics in us. Mainly because of the lights, lasers and the cellular systems , the bandwidths > PHOTONICS, Michael.

Here, I will give you a minute amount of the materials I have on such stuff.

Each time we flip a switch on we are gaining more electrons in us……cell phones, computers, etc. Sorry Michael, I’m not trying to be rude, but just answering your request. Plus, if you really cared, you would not mind anyway. Now, if you’re hiding something from us, then maybe that would upset you. But, I think the best about you., so I don’t think you would mind these links…..

Michael, remember when I brought up Mems to you? Well, Look Here:

Micromachines or Micro Electro Mechanical (MEMs) is an emerging technology that encompasses many different technologies. Micromachine technology refers to the micro miniaturization of machines (at the micrometer level). Micromachines can be found that incorporate silicon based electronic circuitry, micropumps, micropipes optical micro mirrors and cantilevers. Micromachines are closely related to electronic sensor technology. The process for the manufacture of micromachines is closely related to the integrated circuit manufacturing process. However, there are many micromachine processes that are strictly based on polymers or metals

I think I finally, finally found what is in my skin that looks like a scab with a mouth that looks like the letter C….it also looks like a dark dried up scab at times too. BUT, get them wet, and presto, they come back to life! Wanna see???

London, the links you post are ususally very interesting. But they don’t seem to have any connection to what people describe as “Morgellons”. I’m just asking that you take some time to explain the connection, just a few sentences per link would be fine.

That last link on dessicated living things was fascinating, yet it’s something entirely new to the topic. Nobody has suggested that the “thing” can survive dessication (having 0% water), yet you now claim that something in your skin comes to life when water is added. This does not imply full dessication, and so the link does not add to the discussion.

A better approach would be provide a more detailed description of what YOUR critters look like, with measurements, and preferably some photos. Maybe you’ve got some infestation of lice or something, or maybe you are just mistaking dried scabs for living things. Either way, you would be better off if you took careful observations, rather than looking for these rather tenuous googled connections.

If you have a Polypedilum vanderplanki, it would be easy to take it to an extension agent in your area to have it identified. Just put it in a sealed container of isopropyl alcohol (95% is good) and mail it or take it in yourself.

How are fiberoptics being put into your skin and making a circuit? My father actually is a computer engineer working with fiber optics. I just sent him an email to see if his company is putting it into people’s skin against their will– I’ll let you know his answer. I think that because the word “Fiber” is in there is not a very good reason to conclude that it is the “fibers” about which people who think they have morgellons have.

You also mentioned “the biochemists.” Which ones? I understand you refer to the ones who study fiber optics, but are the ones engaging in this diabolical breach of ethics working for a corporation, or for a university, or in someone’s basement?

I know this isn’t completely on topic for this post, however, it is the latest post by Michael so perhaps more people will see this and answer.

I am interested to read comments from anyone who believes they have Morgellons disease (or from people who live with or know a morgellons patient) who have:

A) Been diagnosed with DOP or any other psychiatric disorder such as Munchausens, Munchausens-by-proxy, OCD, ADD, ADHD, etc.
B) If so, what was the prescribed treatment (meds? talk therapy? Both?)
C) Did you follow the prescribed treatment, if so, how long?
D) If you chose not to follow the prescribed treatment or attend any referrals, what was your reason for not doing it?

I am also interested in answers to the same questions, but with regard to skin disorders.

I realize it sounds as though I am challenging you, but truly, I’m not. I have simply never heard evidence from *anyone* who claims to have Morgellons and who also insists its not a mental disorder (well, I guess the two go hand-in-hand) who has actually specifically said they were diagnosed with DOP, etc, *and* followed the prescribed course of treatment.

Basically, you say it’s not DOP but you never say how you *know* it’s not DOP. Omitting DOP as a possibility is meaningless unless you have actually been diagnosed, got treatment, and it didn’t work. Ditto for any other mental disorders.

okay, as it lies on top of my off-white carpet, it looks to be about the size of my pinky nail. When you get closer, it almost looks like a broken-off piece of beef jerky. When I look at it under the microscpe (yes, I own one), ot looks like it has hair on it in some places. It is very dark in color (beef jerky) or the color of a dark scab from one’s body.

When you wet it, it starts to activate within one minute and it forms this longer, lighter scab and forms the shape of a worm.

It is not a louse, and I do not have a lice infestation upon my body, although, the good lord knows I could very easiy get one since our gov’t has freely released them for their little stupid bio-control practices.

This thing is what I have in me: Larvae of Polypedilum vanderplanki and it is from Africa…..

The Japenese boys perfected it’s clone and our biotech beastyboys and insipid, twisted scientist at the universities took notes…and perfected. We now use these in our watering holes here in the US to help control the invasive aqua-weeds called hydrophila…

Also, the parasitoid wasp venom is v. dangerous. It is called Mastoparan and it is also found in our lovely GM foods , i.e., the soybean and the tobacco (which activates it.)

do some reading up on Mastoparan, it is oh, so bad to the body!

Yes, anonymous, long week and I hope everyone has a great weekend too…

As an active participant on lymebusters for roughly six months, which entailed a lot of learning, and failed attempts to break through to most people, the answers to pertinent questions were commonly evaded. As people appeared there, it was taken for granted (somehow, which baffled the living daylights out of me), that advice could be issued out to them on home remedy treatments (not too wise ones, to begin with, for anyone, regardless), without anybody asking anyone anything about what they were experiencing. They all just seemed-to-know, and when questioned, which I certainly don’t think was too much to ask, got angered, and/or disappeared for a while from posting. Now, if what I’m saying is “gossip”, go on into lymebusters and try that, now. You’re free to look around, but questions, shall we say, are kind of “prohibited”. This is the internet, and there’s not really any privacy, contrary to some beliefs. If people are expected to understand this, then why all the anger at simple, well thought out, pertinent questions?

Smileykins, I was a registered user at Lymebusters for approximately 2 hours before I was “locked out.” I never posted anything, but did a lot of reading in that short time. I didn’t pursue getting back on because I didn’t want to draw attention to myself and frankly, beyond just seeing how sick everyone was, it wasn’t a great source of factual information, as you know. Of course, this was right before the big shake up at the MRF and shortly after they started requiring registration for all users, not just posters. Anyway, just being on there for a couple hours was enough to make me shake my head… it’s the worst possible sort of “support” group and isn’t about making anyone better.

Given its nature (and the moderator’s quick fingers at the “lock out” button), I guess Lymebusters isn’t the greatest place to ask direct questions anyway, especially when it comes to mental health. I honestly don’t think most of them are truly interested in finding out what really ails them, because a very big part of what truly ails them is the very thing that prevents them from finding out what’s wrong. Or perhaps I should say “prevents them from *believing* what’s really wrong.”

That’s why I keep asking questions–I’m tired of hearing “it’s not DOP” or, more commonly “I’m not crazy.” First of all, “crazy” is a very simplistic word used to convey a very complicated thing. Second, like I said in my post above, you can’t omit DOP or any other mental disorder as a possibility unless you’ve been diagnosed and treated (for a reasonable length of time, might I add) and you still have “morgellons.” And no one has ever offered evidence that this is the case–they only say “my doctor won’t listen,” “my doctor won’t consider anything that’s not in the ‘medical books,’ etc.” Fine, all of that might be true. But demonstrate to me that you went to that doctor with an open mind to his/her diagnosis and followed the prescribed course of treatment.

MHKS, you asked to hear from someone who believes they have Morgellons or someone who knows a believer. I am the friend of a believer. I too would like to hear from those who are related or know believers. I think some of us need advise and support. My believer has had emotional issues most of his life. He apparently had some kind of insect infestation in his home and started to experience itching. Unfortunately he logged on to MRF and is now a full fledged member.
He is willing to give up his pets, his home, his posessions because of this belief. He has spent money he does not have on cures.
I’m appalled by the way LB and MRF have brain washed the mentally challenged.
But I’m getting off the track.
My concern is how to relate and react to those who believe they have Morgellons. Do you support them in their beliefs? Do you try to disuade them (you know that is most difficult).
My believer (who I will call MB, to protect the innocent)sees a psychiatrist and a therapist. MB has been in a mental hospital due to this issue. Has been suicidal. It has been a 2 year roller coaster ride of emotions to all involved.
Who else is dealing with these issues? How many believers have a history of mental illness. Please lets hear from you.

I agree, totally, MHKS. I really did tippy-toe my way around when I was there, unbeknownst to anyone, with it taking very little effort to realize I was not on a health support forum. I would have otherwise posted my entire past experience there, to try and help, and I actually was working up to it, but I knew that it was a “no-no”. When I posted well-meaning, good health practices, which would benefit anybody, I’d often elicit bad reactions from doing so, always unintentionally. It’s a very sad, and a very disturbing forum, where they don’t do things conducive to bring about good change, contrary to their thoughts on the matter. One immediately gets a feel for things, there, and realizes that they’re in uncharted territory. What a way for you to experience it. That would play an even more intriging part of an overall introduction into this topic, if I ever heard of one!

This is really going out there, with some of my thoughts, but, I believe that if we wanted to (just sort of, in a way), we might say that what “morgellons disease” is, is this:

Although, in my opinion, there is no “morgellons disease”, maybe we could look upon it as a syndrome, of sorts, that patient behaviors culminate into, stemming from the adverse health consequences of resisting doctors’ diagnoses and recommended treatments. When such patients present in the manners in which they do, they apparently seem to think that their doctors are uncaring, and not well educated in parasitic diseases, and such patients expect far more from their doctors than what they get. Rather than being in the possession of the capacity to call their own perceptions into question (of what they believe they’re experiencing), therein lies the beginning of much worse things, yet to come, and in ways, I think some of this may hold a certain degree of putting all of society at risk.

Now, why would I say such a thing? Does that mean I’m implying that I actually do believe in such a thing as “morgellons disease”? No, not in the least. It’s a well known fact that a significant portion of this group of patients practice antibiotic experimentation, as well as other self-limiting (what they consider to be), self-help remedies. Harming themselves, and inflicting misery on those around them, is a significant enough horror to read about. The unregulated, unlimited, use of antibiotics in the hands of people who have no idea what they’re doing, poses a very serious health risk to all of us.

Yes, we’ll possibly be at risk of “catching their disease” (as so many of them say), that way, one of these days, but it’s not anything called “morgellons disease”. Of course, not everyone who thinks they have “morgellons disease” is playing around with antibiotics, but for those who are, I think they’re unwittingly creating new strains of super pathogens to endanger society, as a whole, in the present, as well as in the future. It begins small, within families, and their communities. I sure wish people couldn’t access antibiotics over the internet, but wishful thinking doesn’t go anywhere. I’ve read that we even have some new germs that have mutated and become resistant to bleach, as a surfactant disinfecting agent. I don’t want to spread any extra, unnecessary, fears concerning the unfoldings of these chains of events, of course, and a certain set of people don’t like hearing anything I have to say, but these are just some of my thoughts on the matter, relevant, irrelevant, or otherwise, based on just a few things I know. They’re merely a few of my opinions, and not to be taken as anything more than that. Not a real good “coming attraction” we have to look forward to someday. So many of these people are so dead set against the pharmaceutical industry, but what they say doesn’t add up to making any sense. Not any good sense, I mean.

I seriously think that if morgie people “do” want us to understand their plight, they need to assist us in understanding, and strive to practice honesty in answering questions that aren’t the least bit unreasonable to ask. Some do, I think, to the best of their ability, but many evade all issues, choosing their alternative methods of trying to make us all believe. It seems that many use the words, “sane” & “insane”, as though there is nothing that falls in between.

Please, there have to be some “morgellons victims” reading here, so would you mind indulging us with we’d like to know? I’m re-posting your above post with the questions, MHKS, and to all, I apologize for going on so long with my thoughts.

I know this isn’t completely on topic for this post, however, it is the latest post by Michael so perhaps more people will see this and answer.

I am interested to read comments from anyone who believes they have Morgellons disease (or from people who live with or know a morgellons patient) who have:

A) Been diagnosed with DOP or any other psychiatric disorder such as Munchausens, Munchausens-by-proxy, OCD, ADD, ADHD, etc.
B) If so, what was the prescribed treatment (meds? talk therapy? Both?)
C) Did you follow the prescribed treatment, if so, how long?
D) If you chose not to follow the prescribed treatment or attend any referrals, what was your reason for not doing it?

I am also interested in answers to the same questions, but with regard to skin disorders.

I realize it sounds as though I am challenging you, but truly, I’m not. I have simply never heard evidence from *anyone* who claims to have Morgellons and who also insists its not a mental disorder (well, I guess the two go hand-in-hand) who has actually specifically said they were diagnosed with DOP, etc, *and* followed the prescribed course of treatment.

Basically, you say it’s not DOP but you never say how you *know* it’s not DOP. Omitting DOP as a possibility is meaningless unless you have actually been diagnosed, got treatment, and it didn’t work. Ditto for any other mental disorders.

I’ve never been diagnosed with a skin problem, but I can give you an overview of what I’ve seen with patients:

A) Been diagnosed with DOP or any other psychiatric disorder such as Munchausens, Munchausens-by-proxy, OCD, ADD, ADHD, etc.
>>most of these are treated with medication. DOP disappears with the right tranquilizers/stabilizers. OCD really requires a psychiatrist + meds, ADD & ADHD requires meds and a behavior plan.

I have seen so many somatic infections/injuries disappear very quickly when patients are sent home with thorazine.

The one thing that strikes me is that there are a lot more skin problems coming up all the time. I think it has to do with more people reporting, when in the past, they’d just put some ointment on it and wait it out.

I admit I did feel we were talking about a new disease for a time, but most of the doctors I’ve spoken to feel it is DOP or any number of bacterial/fungal infections on compromised skin.

Now, it is really hard not to entertain thoughts of what a Morgellons Festival might be like, though, isn’t it? Will there be a tent, with morgellons’ specimens in jars on display? Will there be booths set up where you can get zapped? Tin foil hats, fog horns, hand-held scanners, and a talent show, maybe?

It occurred to me earlier when I was posting a reply to Aherah’s answers to my questions (on Occam’s Hot Tub) that in some cases, there is not necessarily a “hardcore” mental disorder involved (not even sure what I mean by hardcore–maybe something that requires antipsychotics or even therapy). Anyway, the way I put it was “interpretation of the origin of the fibers,” meaning that one is not imagining the fibers themselves, but that they are wrong in their interpretation of where those fibers are coming from and this belief has been validated through forums such as lymebusters and the MRF.

Smileykins says: “Now, why would I say such a thing? Does that mean I’m implying that I actually do believe in such a thing as “morgellons disease”?”

I’m beginning to think that what “morgellons disease” actually is is the MISTAKEN BELIEF that your body is producing fibers. In that sense, I do think it exists–as Michael says, fibers are everywhere and they do get into sores. They do sometimes come out of unbroken skin. Fibers are stuck in scabs and healing lesions all the time. Couple that with someone who is prone to mental disorders or just has some emotional issues and who has a skin disorder that won’t heal (especially if you’re constantly picking and scratching at it, hello) and maybe fibers are just an obvious thing to focus on. Maybe it’s no coincidence that “so many people” have the “same symptoms.”

So perhaps “morgellons” does exist, just not in the way sufferers want us to believe. It’s actually a mental disorder similar to DOP or a subset of DOP. Course, we could call it anything, I’m just calling it morgellon’s disease for the sake of argument.

But of course these are just theories. Every case is different, I’m sure.

Delusions are not “seeing things” that aren’t there. Delusions are false, unfounded, and unshakable beliefs. If they are “seeing things” that aren’t there, they would be having illusions, or hallucinations, not delusions. If they have a false, unfounded, and unshakable belief that they are infested or infected by organisms, for whatever reason, they are having, by definition, Delusions of Parasitosis. These people need to adopt a new interpretation of their problems. They need to quit worrying about the doctors diagnosis, but start doing what they can to fix the mental problem.

“Mental problem”? “They know they aren’t crazy”. That is what they say, is it not? If they had more of an understanding of the human mind and brain functionings, well, frankly, I think if a lot of them had less prejudiced notions on a whole lot of things, and less hang-ups, they’d let their guard down and be receptive to some realizations.

To the NEW SARAH on the blog – I was just wondering whether you could consider changing your username as I think it could become a little confusing. I have posted on this blog before and I may want to post again in the future. Thanks SarahC

Yeah, they put the spintronics on her arse, that’s all…lying doctors…I hate em!

[Spun glass hair (author's transl)][Article in German]
Goerz G, Busch P.
A 5-year-old girl with the characteristic clinical picture of “spun glass hair” is described; additionally she suffers from atopic dermatitis. This case is of special interest since the child not only suffers also from endogenic eczema, but that another member of the family (child’s aunt) also suffers from the same hair anomaly. The diagnosis is based upon the clinical symptom that the hair cannot be managed, and is proved by observation of triangular and kidney-shaped cross-sections taken from the child’s hair. Electron scan microscopic examination of the hair revealed grooves on the surface of the hair which exhibit similarity to the hair-condition pili canaliculi. The following physical properties of these irregularly shaped hairs were measured: Fibre thickness, tensile strength, extent of fibre expansion shortly before breakage, and form elasticity. None of these properties were found to differ from those of normal hair.http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=7271317&itool=iconabstr&query_hl=10&itool=pubmed_docsum

Almost three years has gone by since I contracted this. I was working on a electrical project under a busy street and moved a mixture of sand and dirt that had long been undisturbed. I seldom become ill but a short time later(perhaps an hour) I began to feel strange and somewhat nauseus.
About the same time my dog who I sometimes call the digger comes home and sleeps near me. During this particular night I feel what I can only describe as a invasion on my body, a movement on my skin and each time I awoke to try and get a visual on this I could find nothing. The crawling and pinching started soon afterward. I made a few trips to the physicians office but because I could offer no insight to help them I was left without any good recourse. Im not in a position to devote all my time to this so discoveries have been slow coming. I used a cotton ball with alcohol on it and rubbed this on my head (hair is shaved short)and used a 5 power eye piece to view.
I only thought of doing this last winter and found the red, blue,and black fibers and the small black dots and some other things, Im at a loss to explain.
I discovered these things after my trips to the physicians.
I read the expressions and body language of people as well as anyone and dont like what I read sometimes. My former internist sent me to a infectious disease specialist and that specialist wanted me to get a sample. What am I paying these people to do? I do all the work although it is entirely outside of my field.
I believe I need to see another physician since I have more answers now but I am sure that doctors present their ideas to each other and develop a shared view of a problem based solely on the observations or lack of observations. They seem to blindly accept the diagnosis of each other and that is where their delusion comes from. I have been almost 25 years in my career and dont ever believe someone just because they say they are correct.

If you do rub a damp cotton ball on your head, then you will find red, white and blue fibers there, simply because they are very common in the environment, and are found on every surface. There’s nothing unusual about this. Read this:

This article sets forth what I now feel very strongly is going on with Morgellons- it’s a psychiatric condition caused in most cases by advanced Lyme disease. Lyme disease can cause both psychological problems AND itching skin (a friend of mine had both symtoms with Lyme) and so it’s easy to see why Lyme disease is fertile ground for delusions of itching fibers.

This Dr. Smith’s story gets wackier all the time- now he says the fiber actually traveled from his cheek to his eye and burrowed in. Presumably some living entity that according to a poster here can survive 1000 degree heat. Right. He’s really in rough shape if he expects rational people to believe this story of the wandering fiber. Maybe one will hail a cab and show up at my house- hope not.

Robert, my man, thank you for providing that interesting article. Are you the same Robert that commented here in the recent past, who has progressed in learning what this is all about? I had felt “just exactly” like Dr. Smith says, in the closing comments in that story, for a couple of months, myself, a little more than four years ago…

“Unless it’s happening to you, it’s hard to believe,” he said. “It’s hard even for me to believe, sometimes.”

It happened to me, it was hard-to-believe, and I couldn’t “not believe” that it was all happening, until I forced it to cease, when I made a conscious decision to do something to see what the outcome would be. I was so fortunate it worked. Unfortunately, simply striving for optimal health isn’t that easily attainable for most people that I am familiar with, on line, who think they have this. I know I would want it to stop, no matter what, if I had a more difficult to control situation. Two months was too long for me!!!

Michael you are incorrect.White cotton balls will not leave colored fibers on a persons head because cotton is white. It is very obvious all visitors to this blog are dealing with people of very limited insight and are extremely biased in their thinking. You and your friends are so eager to be correct you all lie to acheive your goal. Now that is a serious psychological problem. I dont believe you have observations of this to ascertain your beliefs its all one lie after another but their is some decent people here, with good information. Just not you and the cult you belong to. Actually your morgellons groupies!

If you do rub a damp cotton ball on your head, then you will find red, white and blue fibers there, simply because they are very common in the environment, and are found on every surface. There’s nothing unusual about this.

Michael did NOT say that the fibers are from the white cotton ball. No worries, I’ve noticed you’ve a tendency to misunderstand things you read, jump to conclusions, and then argue quite vigorously from that faulty position.

Well, London, it’s a two day event, so they will be renting sterilized cots. A band will intro with “Hey there, Morgie Girl”. There will be “I notta DOP” T-shirts, among other selections. One of the events will be a scab throwing contest. Skeptics can win anything on the top row if they dare to “Hug a Morgie”. I’ll have to check and see what else is scheduled for the event.

“Are you the same Robert that commented here in the recent past, who has progressed in learning what this is all about? I had felt “just exactly” like Dr. Smith says, in the closing comments in that story, for a couple of months, myself, a little more than four years ago”

Yes- the same one. I started out with an open mind and still think these people are sick but just not with a fiber disease. Glad you’re feeling better.

Cool. Thanks, Robert. Yeah, I’m 100% better from how I was during that 2 month illness. I hope you’re well, and having a nice day.

London, TC’s considering the events, and you, no doubt, already know of a few of professor’s past inventions. (Wait until you see his latest fluke-nuker. We may rent a stand next to the snake oil salesman and sell them at the festival.) Well anyway, he’s almost modest when it comes to his culinary skills, especially in the art of candy making. Gurl, you won’t believe it, but he’s come up with Chinese Cotton Candy. Yeah! We’ll try to sell it there too, but it may not go over too big. It’s 100% safe, though, made from pure sugar, mostly. I’m trying to get the neighbor talked into taking us out there in his hot air balloon. If we make it there that way, we’ll offer rides, of course. Brush up on those skills!

Scab throwing…Jeeze…..Chinese Cotton Candy….what?? No chocolate-covered bandaides this year?? Or who can stand still with their arms behind their back the longest…..well, that one won’t last 2 minutes before we have to scratch…’

But, I can’t wait until the biggest swollen feet contest.
I’m gonna win that one and hope I get a years suppy of Tea Tree Oil…

TC, London and Smileykins how come ya’ll make fun of the Festival? Michael has posted “5 people had aids and the CDC looked into it” – so are you three afraid that people will get together – face to face – and “just maybe” more then 5 people can come up with the same symptoms? or brain storm a better way to get evidence?

I think it’s a great idea – get folks together – talk to each other. So if non-believers of morgellons is out there and think this is stupid I send a personal invite to ya’ll to come and give everybody a HUGE HUG. Bet ya’ll won’t do that

Get togethers are good – food for thought – fun outing – why not!! At least one day out of someones life can be with folks that UNDERSTAND!!

A festival sponsored by the New Morgellons Order sounds like an event to look forward to, and, like Chaz’s phrase, “The Morgellons Have Landed”, it conjures images of a carnival atmosphere. I think it’s high time morgie people got together.

Are “we three afraid that people will get together – face to face – and ‘just maybe’ more than 5 people can come up with the same symptoms, or brain storm a better way to get evidence?” Absolutely not, TexasRose, and like I said, I think this two day event will be good for people, and a fun outing, also.

I don’t think it’s stupid to be with folks who understand. I wish (more than anything, actually) that the morgie people who feel misunderstood and persecuted by their friends and families were able to imagine what life is like from their standpoint, too, and keep it together. Too many don’t seem to.

I don’t think the itching is funny. Nor do I think the pain is funny. I don’t think it’s funny the way this has hurt relationships either.

The thought of a Morgie Festival can be funny, with a little bit of imagineering. I think its good when Morgies find laughter in their situation. It doesn’t mean that we are glad about the Morgellons problem.

I’ve spent countless hours trying to think of ways to help Morgies. I’ve spent a lot of time sharing info for that purpose. I’ve also tried to bring some humor into their otherwise miserable situation.

I used to research constantly, and I shared that research with other Morgies. Eventually, I came to believe that we were wasting our time, that the illusive pathogen has never existed. I think many morgies believe that very same thing, but have trouble admitting it.

I think Dblcrk is in charge of organizing the festival, and her son’s band will be performing.

Maybe not this song, but TC thinks it’s possible that they might open with it..

Hey there morgie girl
There´s another someone deep inside
Bring out all the love you hide
And oh what a change there’ll be
The world will see a new morgie girl
Wake up morgie girl
Come on morgie girl

Yes, we’ll be holding onto London’s hands too, as we go merrily along, skipping to da-do-dah-day Ted’s gonna be there doing his hit, for sure, ain’t he London? I want do one of the abduction simulations, too!!

You know I can not make sense of some of the “goings on” with the ex MRF members.

Why does the NMO believe Mary Leitao to be the “Devil” herself? After all she is the founder of the Morgellons Research Foundation.

My personal opinion – some of them believed she was mentally ill, and thought they would take advantage of the situation.

Now the NMO want to raise funds for Dr Wymore’s research at OSU to find the cause of Morgellons Disease and hopefully a cure. I do not know anything about Dr Wymore or the OSU. A cure will be 10 to 20 years down the track if we are lucky.

Chas & Cindy Holman had become very good friends with Dr Wymore in the past, and he was able to spead some time with a “Morgellons” victim whilst they had a bit of a holiday and recreation time.

I do not know Chas & Cindy personally, only emails and a couple of phone calls. Really nice people though. Charles says he does not have Morgellons Disease.

Mary Leitao is not with the NMO, she did not know of a Morgellons Festival either. She referred to the NMO as “oh them”. She said the CDC are doing their investigating and OSU still continue to do what they do. This was not discussed indepth any further.

It is clear that the internet is manifesting and creating many lies surrounding the MRF and in particular Mary Leitao. Mary does not have the skin symptoms of Morgellons, but her symptoms would fit the description of “Chronic Fatigue Syndrome”. The fibers she sees from herself is from her hair when she brushes it, and the blue fluff caught in the hair brush.

I haven’t needed to talk to Mary Leitao recently either to tell you any of this. Her life since starting the Morgellons Research Foundation has been a nightmare. She has been stalked, received abussive phone calls day and night some even 10 minutes long on her answer machine, death threats, friends of hers suffering from Morgellons she has had to move away from because of the paranoia involved with this. Mary then becomes every sufferers target when the paranoia of this disease becomes too much. I know this because the internet led me down that horrible path also.

Cliff M. also is not a great fan of Mary Leitao and told Dr Wymore this 6 months ago and said to get rid of her. So would the diagnosis of Munchhausens’s Syndrome Via Proxy have been the push? Six months into knowing Mary she told me that Doctors were threatening her with this (MSBP), but she does have a couple of very good doctors who know her extremely well and these doctors you would not have read about in any newspaper or on the internet. Mary Leitao is not a child abuser in my eyes, she is a mum, a grieving wife who loves her sick children. If the medical profession believed her to be a danger to her children, they would have been taken from her long ago.

Mary has pushed and pushed for media in Australia, but this was for Ken Cowles to have the final say on.

Now you can all make up your own minds about what is going down with the NMO, Cliff M and MRF, but I would like to give you the facts if I may.

The Morgellons Research Foundation has not fallen apart. The people with the NMO are the ones indicated on their website, and Cliff has his websites. Dr Wymore is with the OSU and this is also stated on his website and his research into Morgellons.

Can you see how the behaviour of others since the MRF was started is questionable, especially when reading on the internet. It could only be one of two things I think.

1.They All Have Morgellons Disease
OR
2.Some do not have Morgellons Disease only their own hidden agenda.

ONLY TWO THOUSAND $ 2,000.00 FROM MRF + $2,000.OO FOR Brandi Koch was SENT TO RESEARCH = $4,000.00.

Do people NOT SEE IT????????
Ok if you don’t – November 15, 2006 their 990 will be filed – so then ya’ll can see the INJUSTICE OF THE MRF!!!!!!!!

The the MRF is a ‘RESEARCH’ FOUNDATION!!!!!!!!!! So WHY NOT send the donation money to Dr. Wymore????????????

Question: YOUR KIDS have morgellons, you as a mother want a cure so WHAT’S THE HOLD UP ON DONATION MONEY????

Mary L. should have stepped up and told anybody that was part of HER foundations – “I don’t give a shit want ya’ll say but checks in the mail to OSU for all donations that have been made!!!” Why didn’t she do this not as a the top dog of her own foundation but AS A MOTHER WANTING A CURE!!!!!!!!!!!!

Plus if anybody that was on the board at that time said “Mary, I don’t think that’s a good idea to send it ALL” She should have answered “I don’t give a F*** what you think, my kids need a cure!!!!!!! Don’t like my decision then resign or even better “your fired”" – Question: Why did she not do this for her own kids, if not for all the morgellon people on this planet???? Anybody got an answer?

Mary Leitao is a founder of WHAT?? RESEARCH??? Show us what research this foundation has done in the last year??? No updates on MRF website – so what is MRF all about?

Yes the NMO wants to raise funds for OSU – WHY YOU ASK – BECAUSE THE MRF IS NOT SENDING ANYTHING OSU. You will also note on the NMO website that all donations are MADE AT THE OSU WEBSITE!!! Big difference then the MRF website, make a donations to the MRF, then email FOREVER asking were your donations went!!

Yes the Holmans are working with Dr. Wymore, trying to provide everything that they can – WHY???? Mr. Holman’s WIFE CINDY HAS MORGELLONS!!! Duh Mr. Holman wants a cure and will fight anybody on this planet to get the job done!!!

OK Sara next time you talk with Mary – tell her the MRF is invited to the Festival. Because the Festival has only been on the website about 2 months – SO THAT MEANS – you have talked to Mary since the festival was put on the website. HMMMM Question: you have been blasting mary in your post the last few months hmmmmm.

Wow – Mary L. has gotten: stalked, received abussive phone calls day and night some even 10 minutes long on her answer machine, death threats
Question: Do we have POLICE REPORTS on this? Nobody would stand around and do nothing when getting this – they would call the POLICE TO REPORT IT.

Question: Ken Cowles ever get the Media in Australia?

Sara you are a ball of laughs with this sentence:
“”"Can you see how the behaviour of others since the MRF was started is questionable”"”
Behaviour of others??? hmmm I can see that “they” are getting donations to OSU, organized a festival to “raise” money for RESEARCH, push for MEDIA, fighting Dan Rutz for answers, etc.
What “behaviour” has the MRF done the last 6 months???????? anybody got an answer??? Step up here and talk MRF???

OH also just a FYI – Karen in Oklahoma is putting this Festival on – the NMO is supporting this with website space and media. Contact Karen she is the one that decided to organize this festival. Maybe people will start organizing one in ever state!!!

Question: Why did she not do this for her own kids, if not for all the morgellon people on this planet???? Anybody got an answer?

Because Mary Leitao didn’t seek mental health care for herself, instead of obsessing over Drew, and finding “morgellons disease” in that ancient piece of literature, and making all of this seem like a reality to so many people. I’m not implying that people who truly believe that they have what she started, don’t have a lot of conditions, but they’re not “morgellons disease”.

Texasrose – The last time I spoke to Mary Leitao would have been about a month and a half ago approximately. I did mention it in one of my posts on this blog site, which would back up you saying that I spoke to her since the festival was announced.

I am only telling you what I have been told okay.

I have not received reply emails from Dr Wymore, nor have I received reply emails from MRF – meaning I sent an email to the Morgellons Information email address asking them for a link to watch the “Medial Mysteries” which was on the ABC. Michael did email me a couple of links, but these will not open.

You must understand I am very much more in the dark than you.

I do not hear from the MRF. I do not hear from Cindy or Charles anymore, since I ignored their last emails, which was them requesting me to please phone them, “we need to talk” was the last one. If they really need to speak to me they can damn well phone me.

I have no idea what is happening with money. But my friend spoke to Mary Leitao when the reports of MRF accountability hit the internet. She told him this was purely a dispute over $100 and a power struggle. I refused to speak to her at this time due to the psychological distress is was causing me. She was really upset to think I was believing the lies on the internet since her and I had been so focused in the past of getting to the bottom of whatever this was.

Look that last conversation with Mary she said to me when I called her “what on earth has been happening on the internet” and she told me that she is still the same person she was when she started the Foundation, she is grounded.

12 months ago when Mary and Dr Wymore were both examining patient samples etc. they were finding that people were infected with all sorts. She kept me up to date with everything. Both Mary and Wymore exhausted every single organism they know and still could not find a single cause or pathogen.

Don’t you think that alone makes her look to be the “bad person” or pushed into a corner which is what appears to have happened.

I will not be phoning Mary. I don’t believe I need to. She is no more aware of the “Morgellons Pathogen” than I am.

Have you never thought to yourself – maybe things would have been different had her husband not died so suddenly? Do you not think that Mary and the children are effected by the death of their dad? Seriously why do you not phone her yourself and ask her, there is no harm in that. If you believe absolutely everything on the internet with regards to Morgellons the paranoia is sure to take over.

I have spoken to both Drew and her daughter Samantha on the phone. Sam has had a real hard time. I spoke to her one time trying to explain why her mum continues to do what she does.

Can you not just think that maybe Mary is also suffering at the hands of the Morgellons Phenomenon? She can not control what others are doing or how they are thinking.

Why is it that Dr Wymore gives a lot of credit to Cliff for his research?

Mary said long ago – “some people think Morgellons is caused by chemtrails, or bioterriorism, or an experiment escaped from a lab ie. southcity. Her and I both agree that Lyme Disease to be a common denominator in the Morgellons Group. Not because Ginger Savely said this, because of our own experience with Morgellons.

Now I have also entertained the idea that Mary could have started this purely for Research and Money, but then I say to myself, she would have to be a damn good actress, and if she has stolen large amounts of money – someone, somewhere would have pinned her for it by now.

The remaining members of the MRF are very quiet. I think they have had to do this because of what has taken place on the internet. Personally I think Cliff becoming friendly with Chas, Cindy and Dr Wymore has really changed a few things. I have no proof of this just my gut feeling, that last phone call with Mary, and what I read on these websites. As I said we did not discuss the NMO, that last phone call I made was purely for me, I was desperate for some support, someone to listen to me and understand my fear.

Maybe as the days progress things may make more sense to me and appear clearer but I am just telling you the truth. I spoke with Ken once back in June I think, he seemed to be focused on Dr Wymore’s research and finding a research/uni facility in the Melbourne that would take up Morgellons Research. I have told you before I have enquired about sending Dr Wymore samples, only to receive silly emails from his coworkers saying we can not accept samples from everyone. What am I to think or do if he does not reply to my emails. I sent a copy of my email to Charles Holman that I sent to Dr Wymore, he told me I was guaranteed to get a reply, but not straight away as Cindy had also emailed and was still waiting a reply.

Mary does not have a Morgellons wristband and isn’t really interested in them, she said people love them and never take them off, but this was trivial stuff for her, and I understand.

When I asked some time back what is taking the CDC so long, she just said – they obviously don’t believe that people are really suffering and that this is a real disease, she sounded extremely depressed and sounded more and more depressed in each phone call prior to the blow out with MRF.

I will tell you that in a private message with “Anthill” on Lymebusters he told me that Mary is cool, she can be trusted, and not to worry about the MSBP, but he also said that “they” had a joke lined up for Mary which she would probably not find very funny. I did mention this to her, and she had no idea what he was talking about and neither did I. So we discussed it no further. We assumed it was to do with this blog site because Anthill had been tracking alot of posts on Lymebusters that were linked to this IP Address. Now after my experience with some people on Lymebusters they are definitely two faced. She has only ever spoken nicely about Anthill in which he was discussed very briefly in one phone call, and she said that after this whole thing is over at least he maybe able to get a job in the IT Computer area since he has learnt so much, rather than going back to being a Carpenter. Now take that information which ever way you like it.

Texasrose – Just prior to myself being banned from Lymebuster a lady from Australia posted that she had sent $40 in donations to Dr Wymore at OSU but she had not had receipt or acknowledgement of this money. She posted about this 2 or 3 times, but no one answered her.

The MRF got over TWENTY THOUSAND DOLLARS IN DONATION!!

over $ 2 0 , 0 0 0 . 00 in donations!!!

ONLY TWO THOUSAND $ 2,000.00 FROM MRF + $2,000.OO FOR Brandi Koch was SENT TO RESEARCH = $4,000.00.

Do people NOT SEE IT????????
Ok if you don’t – November 15, 2006 their 990 will be filed – so then ya’ll can see the INJUSTICE OF THE MRF!!!!!!!!

I will wait to see the evidence of any wrong doing by any current or past members of the MRF. Texasrose are you basing this on pure “hear say” or do you have actual proof yourself?

OK Sara next time you talk with Mary – tell her the MRF is invited to the Festival. Because the Festival has only been on the website about 2 months – SO THAT MEANS – you have talked to Mary since the festival was put on the website. HMMMM Question: you have been blasting mary in your post the last few months hmmmmm

As I said in my previous post Texasrose Mary was not interested in any festival. Yes I have blasted Mary in the past, only because of this disease,the paranoia I have suffered since reading utter lies and crap on Morgellons message boards. All my treating physicians and psychiatrist are aware of Morgellons and everything that has gone down and still is. I would like to think that one of them would have told me long ago if this was purely a scam, research or a money spinner. I was after all following the advise of my treating physicians.

TexasRose Says:
September 21st, 2006 at 6:28 am
OH also just a FYI – Karen in Oklahoma is putting this Festival on – the NMO is supporting this with website space and media. Contact Karen she is the one that decided to organize this festival. Maybe people will start organizing one in ever state!!!

Personally I believe a festival to be a waste of food and oxygen. This could be better used by putting pressure on the CDC and Mr Dan Rutz.

Why is it that I now receive emails from Greg (Morgellonsusa.org) saying he is doing great and back on track? These emails are not personally addressed to me, I am obviously on his mailing list along with the others. He has Cat Scratch Fever and Lyme Disease and claims also to have Morgellons. I know nothing about this person other that what we have all read and heard on the internet radio broadcasts.

I received an email from Cliff last week asking me how I was going. I replied very quickly with “Okay considering, do you know what the hell is going on? And don’t give me any of that Alien crap either.” I did not receive a reply, but he still continues his mind games with me over at Morgellons Group. Do you think this is fair to someone in my current health situation?

One more thing Texasrose – My last phone call to Mary Leitao was my last resort. I had phoned Dr Greg Smith on his home phone and his mobile and also Judy’s mobile. I left messages asking them to call me and leaving my contact phone number. I heard nothing. I then had a couple of emails with him and I was really surprised actually because he appeared to not really know much about my health situation, I was under the impression that he knew about me, and I was also told by Charles Holman that Dr Wymore does know who I am.

Dr Smith said I can give his phone number to any physician in Australia who would like to learn about Morgellons Disease. Well I gave the lady doc I saw the contact information for the doctor at the CDC and the phone number for Jane Perry at the Georgia State Health Department.

If I was living in the USA I would make a personal visit to the Georgia State Health Department and I would do my best to contact whoever I could at the CDC and would not be spending my time raising funds for a University who claims to be researching Morgellons. I would most definitely consider sending donations (if I had the money of course) to the OSU once the CDC make Morgellons Disease an official dissease.

I have known of three people, in my personal life, in the distant past, as well as having been witness to another case, that when a team of doctors didn’t know what was causing these people to be ill, they contacted the CDC. They responded rapidly, coming to the hospital to investigate. The CDC does a wonderful job, contrary to some beliefs, but this particular phenomenon of “morgellons disease” has come about in such a way that is unique. It takes extra time for something of this nature. I hope that morgie people, who’ve seriously wanted their assistance, followed the CDC’s written instructions and sought help from their local health care providers to help move their investigation along.

A dispute over $100 bucks? yeah right, get your friend to call her back and ask “How has the MRF spent the $20,000 that has been donated?” Would love to hear Mary’s answer on that one!!

Mary says “power struggle”??? yeah right – it was no power struggle – it was people saying “this is a research foundation, lets send the money to RESEARCH!!!!!!!”. BUT BUCKY AND MARY COULDN’T DO THAT, OH NO!!!

Lies on the internet??? what lies?? the only thing I see is people question the MRF of donation funds. Hello MRF were you spending all the money???

Did you keep any of those “up to date emails from mary” on her and wymores findings of the samples? I would like to see what she wrote.

Nobody has ‘pushed’ mary in a corner – all she needs to do is make another public announcement of a account of all the money that has been donated to the MRF and how it was SPENT!!! End of story and I would go away!!

I really don’t care about Mary’s personal life – I CARE ABOUT what her foundation is doing with the funds ONLY!!!

Why do I not phone her? Email me the phone number will LOVE TO CALL HER!!!!!! I would also record the call so I could post it on the web – that way people will be able to hear the answers I would like to have from the MRF.

Why is it that Dr. Wymore gives a lot of credit to Cliff for his research? hmmmm DUH BECAUSE CLIFF IS RESEARCHING THIS ALSO!!! But the huge question is “why DOESN’T Dr. Wymore give credit to the MRF? oh that’s right – they “really” aren’t into “research” now are they.

This is great:
” Now I have also entertained the idea that Mary could have started this purely for Research and Money, but then I say to myself, she would have to be a damn good actress, and if she has stolen large amounts of money – someone, somewhere would have pinned her for it by now. ” HELLO MY NAME IS TEXASROSE!!! PINNED HER IS MY GOAL!!!!!!!!!!!!!!!!!!!!!!!!!
“The remaining members of the MRF are very quiet” HMMMM maybe they are to “chicken” to say anything!!!!!
Sare think about WHY Cliff would go with Chas, Cindy and Dr. Wymore and not the MRF. Because C & C and Wymore are RESEARCHING THIS – I would go with the folks that truely want to figure this out asap too.
Did Ken get that research in Melbourne YET!!
Everybody wants to send samples to Wymore – if he needs some – I am sure everybody will be contacted a date and time to give samples.
Why doesn’t Mary have a “wristband”??? Wow – it says Morgellons.org and the MRF is getting DONATION MONEY OFF THOSE BANDS because they say ” .ORG ” !! Half the money raised from those wristbands go to MRF the other half goes to OSU.
Anthill is an idiot!!
I never base anything on “hear say” – I get proof first!!
Ok about the Festival – Lets just say about 1 – 4 thousand people show up to support the festival. Now how fast do you thing the media will be all over this??? Sure would put more questions at the CDC from the media. sounds like a great idea to me – I say next festival should be held on the front steps of the CDC!!!! Let ALL those people that work there go through a ton of people with morgellons WOOHOO THAT SHOULD WAKE UP THE CDC!!!
I have NO clue why you are getting emails from Greg, morgellonsusa.org, I don’t get any emails RATS I FELL LEFT OUT. Wonder how I could get on the mailing list, hmmm.
BACK UP – Cliff ask by email “how are you doing” sounds like he cares about your well being. and you come back with a sentence ” And don’t give me any of that Alien Crap either”??? I wouldn’t email you back with an attitude like that!!! So much for someone reseaching out to see about your well being.
DON’T GO TO MORGELLONS GROUP if it makes you stressed out!!!
OH everybody is contacting the CDC and getting into heated conversation with Dan Rutz!!!!!! VERY HEATED – huge push from many people with morgellons tagging that CDC to do something.
Ok coffe and flowers are not good for ya – how about reading a good book? or just watching clouds go by? Anything you like to do that gives you a good feeling is positive thinking.
Gee Sara – I have heard a lot about ya!!! Yes we have never talked by phone but heck I worry about your well being along with everybody else that has known ya for a long time.
If this was ment for me:
BUT you don’t want to discuss FACTS it seems.
Sorry for my late reply – but Japan folks will not go to bed today grrrrr. I do work online with people in different times of the world. So sometime I get tied up with them sorry but they do help pay my bills – just a online J.O.B.
Sara please I am not jumping at you, I just really don’t have much “tack” really when it comes to injustice of the MRF. Many people “trusted” them – but they sure haven’t followed through.
A lot of things are in the works that should be coming out soon that I hope will PUSH CDC, DOCTORS, ETC. to stop and try and FIND ANSWERS before “blowing” off the patient that is sitting there asking for help!!!
Sara – please have a great day oops night time then a great day. It’s getting late for ya down under.

I don’t mind you coming at me Texasrose, not by that last post. That really rammed it home okay.

Did you keep any of those “up to date emails from mary” on her and wymores findings of the samples? I would like to see what she wrote.

Yes, I have every email that was ever sent to me.

Why do I not phone her? Email me the phone number will LOVE TO CALL HER!!!!!! I would also record the call so I could post it on the web – that way people will be able to hear the answers I would like to have from the MRF.

I will email you the number.

Why is it that Dr. Wymore gives a lot of credit to Cliff for his research? hmmmm DUH BECAUSE CLIFF IS RESEARCHING THIS ALSO!!! But the huge question is “why DOESN’T Dr. Wymore give credit to the MRF? oh that’s right – they “really” aren’t into “research” now are they.

What I don’t like about Cliff’s involvement with Morgellons is that he is now appearing as a “Researcher” and nothing more than that okay, not a sufferer in my personal opinion.

Sare think about WHY Cliff would go with Chas, Cindy and Dr. Wymore and not the MRF. Because C & C and Wymore are RESEARCHING THIS – I would go with the folks that truely want to figure this out asap too.

I have thought about why Cliff will go with Chas and others, because he is a hitching a ride, he is on his own hidden agenda.

Did Ken get that research in Melbourne YET!!

I would not have a damn clue. I have given my doctors and Psychiatrist the links and email addresses for OSU and Dr Wymore.

Ok about the Festival – Lets just say about 1 – 4 thousand people show up to support the festival. Now how fast do you thing the media will be all over this??? Sure would put more questions at the CDC from the media. sounds like a great idea to me – I say next festival should be held on the front steps of the CDC!!!! Let ALL those people that work there go through a ton of people with morgellons WOOHOO THAT SHOULD WAKE UP THE CDC!!!

Damn good idea now you put it that way. You know 12 months ago Mary used to talk about going to the CDC, or moving in next door to the CDC. Even guns were mentioned (jokingly of course). (I didn’t bring it up either).

I have NO clue why you are getting emails from Greg, morgellonsusa.org, I don’t get any emails RATS I FELL LEFT OUT. Wonder how I could get on the mailing list, hmmm.

Just do a radio interview on Morgellons with the X-Zone!!!

BACK UP – Cliff ask by email “how are you doing” sounds like he cares about your well being. and you come back with a sentence ” And don’t give me any of that Alien Crap either”??? I wouldn’t email you back with an attitude like that!!! So much for someone reseaching out to see about your well being.

Well I guess it depends on how I want to take that statement. He is NOT a sufferer of Morgellons Disease (my opinion). His timing with emails and the others affiliated with the X-Zone, which also include on this email list – Jan Smith, Dr Greg Smith, Chas and Cindy Holman, Greg Vigil and now some new fellow in Canada.

Cliff told me on the phone that if one puts in several hours a day of symptomic relief for Morgellons you can get on top of it. This would include, soaking in salt baths, salt packs on lesions and plucking out every Macro fiber from the skin.

Another friend of mine who suffers MS is an Engineer and now a Masters in Psychology has said to me in the past: giving several hours a day maintainence to a disease would definitely be “living within ones symptoms” and not healthy for ones state of mind.

Everybody wants to send samples to Wymore – if he needs some – I am sure everybody will be contacted a date and time to give samples.

I have been promised a clinical study for a very long by Mary. I was told I could be involved in this through my treating physician. This has not taken place to date. I feel by the time I get to forward my specimens it will be too late. Do I send my specimens to the other person in the USA (you may now of her through Chas & Cindy). I just think this could be something better performed by a Doctor here in Melbourne. I should not have to collect specimens myself I am a victim of Morgellons and a patient not a researcher.

Gee Sara – I have heard a lot about ya!!! Yes we have never talked by phone but heck I worry about your well being along with everybody else that has known ya for a long time.

Why the hell is no one doing anything to help me from Australia then?

I really do want to discuss the facts. Mary Leitao came into my life when I was extremely sick and vulnerable. I believed her, I put my trust in her, I was one of her virtual “sales forces” for Morgellons Disease here in Australia. I have done this for nearly 2 years in search of the truth for myself. I know what is happening a lot of people do. But when I ask Mary questions on the phone and she gives me a straight reply back staying very cool and focused is she lying to me??

So my thinking along the lines that Mary’s insight with medicine, biology, pharmeuticals and mental health, got her a bit of a money spinner through the internet. Especially if she shares information and vice versus with ones Shrink. I do know when “I” am part of a research experiment. That is not a conspiracy theory or paranoia. Just my good memory, and some people putting their foot in it thinking I wouldn’t remember.

Would you like a copy of an email Mary sent to Dan Rutz at the CDC. She sent this email without the permission of the board of the MRF and they were not too happy with her for sending it. Was it really sent? Was it staged for my purpose?

Ok coffe and flowers are not good for ya – how about reading a good book? or just watching clouds go by? Anything you like to do that gives you a good feeling is positive thinking.

I already do all of those things okay, then I organise and dedicate time to this if/when I am feelling up to it. Live with this disease long enough you will NOT find positive thinking second nature. Nothing is NORMAL. Life is just not the same. PAIN is intolerable physical and mental. You know heroin does look like a good out for some people. I just would not go down that track. I have used an opium patch for pain (prescription medicine) does nothing other than make me delirious, drowsy and terrible nightmares and sleep disturbances, and it takes a couple of days for me to return to normal.

Every single little thing will trigger this thing in the brain and body. A plastic bubble is looking like a pretty good option. I really need to be taken care of at times, I can forget so many things – like taking my medication. Try living with an unknown disease that some people brought to the forefront thinking maybe we could be the next HIV community and do some research on those poor vulnerable and sick no hopers.

I keep writing to the media and I even contacted the radio Producer at the ABC Radio again, who had promised to phone me. She has been linked up with Dr Wymore for an media, research, public awareness and eduction of Morgellons Disease. I have told her about my current health and that is now life threatening to the point I could be dying (which I know I am) and I still have no reply.

The internet has become my only hope now. No other Australian Morgellons Disease sufferers email me. Why is this? As I once thought were these people so strategically placed by the MRF and then in turn the Government, and Government here in Australia who pay my Disability Pension.

You have not lived in my shoes for the past 4 years of such indignity, disgrace, and pain that you would not allow any animal on this earth to suffer. Ask for help from what I thought was a very good Health System. Beg for more help from my shrink – to be told to hang in and sit tight. What the hell for? So they keep learning more and more shit from young and intelligent woman like myself dying from this man made disease.

No wonder John Lennon was shot. He new too much, and he had the money to tell the bastards he new what they were up to. I don’t have money like John Lennon. But I know I have been wrongly done by and NO ONE is giving me an explanation what so ever.

Maybe Dan Rutz should have stayed working with CNN. Why did he give away that job for a lower paid job with the CDC. Just another thing I was told by ML.

I left CNN under the pressure of reporting stories “for competitive reasons” even when I knew the information was highly speculative, sensational, and little else. It was difficult to cave in to a management style that favors the sizzle more then the steak and fails to recognize both the positive value of responsible health journalism or the great harm flowing from the opposite.

So I hope ya’ll got the friggin message in ya yanky slang. You fuck wits are dragging this out beyond belief.

I can see that the MRF and the NMO are all still in on this I just think they are. No one gives a rats arse about me here. Mary only did when the media was all hype, but not anymore, I hear nothing.

Well I want answers okay and I want that tomorrow or today better still yesterday. I do feel I deserve something especially since people have made money off me and my illness and still no one comes forward to help, not even the media here in Australia come forward when I write and tell them I have been involved in an internet scan. I tell them the scam surrounds a disease called Morgellons Disease which is not yet identified as a real disease by the CDC but under investigation. I tell them the doctor that treated me for rickettiosis and also his attempt of trying to kill the Morgellons Pathogen.

Telling the media this does still not make them wake up okay. I have tried absolutely everything and I am as angry as hell, the anger keeps me fighting this insane disease.

How about some of you get off your fuckin fat arses and give me some fucking answers.

Now I am receiving emails from Dr John Martin. I gave this information to the Hospital in Melbourne ages ago, as well as stuff on Morgellons. I told them I believed it was a stealth virus. They just chose to treat me like a DOP and learn from me all to the detriment of my health. This is a fucking crime and someone has to be accountable, someone needs to give ME an apology. I do not expect a cure I am realistic, but a fuckin good explaination for this out right use and abuse would really help me sniff the flowers and look at those clouds.

You fuck wits now people like me are living in the “Death” you are all leeches. Sucking out every bit of fuckin energy to fit your fucking wallets.

Well I want answers okay and I want that tomorrow or today better still yesterday.

Well, there’s your problem.

I sorry SarachConnor, but it’s unlikely that you will get the answers you are seeking.

Millions of people have health problems of unknown etiology. They won’t get answers either. This is not because of some vast government cover-up, it’s simply that modern medicine does not have all the answers. Doctors don’t know it all.

Look at Rheumatoid Arthritis – it affects millions, it’s been known as a disease for years, but nobody knows what causes it, and there is no cure.

I understand why you are angry. I feel very sorry for you. But the sad thing is that this anger is only making you sicker. I know you can’t always control your anger, and that’s not your fault.

Michael is correct, Sarach, and you’d really almost seemed to have wanted to not be looked upon as a sick person only a short while back. You’ve said so many things that, really, can’t be sorted out, although I have truly attempted. I’d told you recently, one time, that you weren’t being ignored, but that it was going to take me some time to get back with you. (I happen to have conditions that alter my life immensely, and it’s nobody’s fault. People quite often have to do what they can, on their own, and accept that things can never be the same. It’s never easy.) Nobody can tell what you have going on with your health, but it seems (sometimes) that you have doctors willing to work with you. You’d also recently said that you like to be dependent. Sarach, I’m sorry, but we are trying to understand you, since you’ve chosen to be here, and share so much of yourself with us. We’re all very sorry that you’re so overwhelmed. Have you collected all of your medical records? Since your sister is an RN, perhaps she could make time to go over them with you, and explain everything.

It has been extremely challenging to try sorting out all that you’ve stated is wrong with you. Have you had a fallopian tube and an ovary removed at one point in time? It appeared as though that was what you had alluded to, saying something to the effect that you’d had arrhythmia, at the time, and that it was cured that way, or something. I’m sorry I couldn’t understand, and that I know of nothing I can do to make you feel better.

No fallopian tube removed nothing like that okay. I have only had a tonsillectomy and a benign breast lump removed. I have always been extremely healthy.

Smileykins Says:
September 21st, 2006 at 11:26 am
Sarach, what are your doctors’ prognoses on how much time you have left, and did they say that your terminal condition is “morgellons disease”?

My doctors so far have been rather non committal. I was told last July that I had a 70% chance of full recovery from chronic rickettsiosis in 18 months to 2 years, this was before I told him about my skin symptoms, and he never gave me a physical examination on the first consultation, only listened to my heart and heard my heart murmur and took my blood pressure. The rest was a diagnosis from across the desk by the information I had given him.

I am not sure of my prognosis, but it really isn’t hard to work out when my doctor can’t explain why my body is not absorbing iron and my blood showed some inflammation at the time of the blood tests, which we put down to having a cold. This disease has caused so much damage on the outside of my body, I would hate to imagine what my insides look like.

sarah, dont get caught up in their shit
these people understand very well your distress
like u , i suffer the inhumane suffering, i try a brave face
please fight this evil tooth and nail in the true digger tradition
under the southern cross
lest we forget

Sarah Connor is fighting, but this pro-morgellons NONSENSE is not helping the situation. It’s nothing but a lot of CRAP. There’s absolutely no reason to believe that Morgellons exists. Sarah is much better off treating her rickettsiosis and any other KNOWN medical conditions, and listening to her doctors. Stress greatly hinders healing. This hysteria, impatience, anxiety, negativity, and worry only serves to deplete the immune system and give any invaders a helpful boost. Get a grip on yourselves.

sleep well?
ya wanker?
ur all condemned by the power of god
i call u all to account in the name of christ
get it
if ur so well tc why dont u just fuck off?
yes i pray hard n i swear hard
ur all on the left hand path…great …take the long way home u vampires
just leave us the fuck alone
i adjure thee,
i command thee still of tongue
absent of mind
begone tc

OK GUYS TO THE NEXT LEVEL
ill just start throwing biblical texts at yas
lets call in the HEAVY HORSES
the long bows have all been drawn
in the name of the father the son and the holy ghost and st peter whoo slew simon magi, i call on alll the saints, i call on all redeemed souls to cry to the lord as one in mute resolute conviction
to bring to light the evil works of man
amen
now guys
lets see ur ivory towers crumble
i adjure the, old serpent of the deep, begone , u have been exposed as a cheat and a liar from old
salve me Redemptor Mundi

The festival continues, despite all efforts to interfere and in this case the owner is a beloved friend and will quiz and report any fowl play. London, come out of your condo, there’s a world out here. Hundreds if not thousands are coming and you’ll be missing out and you’re guessing wrong. Don’t make me start this stuff with ya’ll again. I’m not interfering with you and Gill, you’ve interfered enough to become one of the most despised culprits on the internet, but I still don’t understand Michael.. TC….SK…what is your concern? If you don’t HAVE this DOP or Morgellons and you are convinced it doesn’t exist, what exactly IS your vested interest?
Now any boogies come my way or my people’s way between now and the festival and I’m ’bout tired of letting them slide and if you think I don’t have the folks with the computer and investigation skills to track this down you are very sadly mistaken and if it gets to the point of legal interference, I don’t want the hassle but since I’ve got 4 under retainer you are a fly one my wall. Either rejoice that there will be information available. Or mind your own business. What’s it to you? Envy?

London, you blow me the flip away and sicken me at the same time. You know damn well this is a good cause and you’re too frightened to come out of your shell, so you keep playing games. You’ve become one sick puppy and I feel for ya.. Don’ have your email ’cause I got a new computer and I sure ain’t posting mine here, but I’ll tell you what girlfriend….you tell me to bring it on and I will bring it on. MORE JAMM is on and we are cohesive and there will be no more sabotage. Ain’t happenin folks! Think twice ’cause if I I.D. you we’re going to let the big dogs take care of it…outa my hands, I’m tired of messing with you twisted shits.

Hey Sarah,
Come on down and jam up a storm, can you sing or play an instrument like the rest of us? I’ll even set you aside a time spot if you ID yourself at the door. VIP treatment. Boogie down girlfriend, boogie down. Are you stuck in the 70s or 80s, I stopped listening to music for the most part in the 80s, most of it was crap! These are bands with national recognition so you’d better hit your voice coach quick! We’ll se you there! Just ask for me, Mama Shack at the Illinois River in Tahlequah and TC and SK, your picture will be posted at the gate. ID’s WILL be required and purpose determined. Otherwise even the medias saying it’s the best most diverse event to ever hit Eastern Oklahoma so whatever the cause, its a kickass show!

MORE JAMM is on and we are cohesive and there will be no more sabotage. Ain’t happenin folks! Think twice ’cause if I I.D. you we’re going to let the big dogs take care of it…outa my hands, I’m tired of messing with you twisted shits.

So, you are saying if I show up, then you are going to have someone beat me up?

dblcreek Says:
October 1st, 2006 at 1:23 am
Hey Sarah,
Come on down and jam up a storm, can you sing or play an instrument like the rest of us? I’ll even set you aside a time spot if you ID yourself at the door. VIP treatment. Boogie down girlfriend, boogie down. Are you stuck in the 70s or 80s, I stopped listening to music for the most part in the 80s, most of it was crap! These are bands with national recognition so you’d better hit your voice coach quick! We’ll se you there! Just ask for me, Mama Shack at the Illinois River in Tahlequah and TC and SK, your picture will be posted at the gate. ID’s WILL be required and purpose determined. Otherwise even the medias saying it’s the best most diverse event to ever hit Eastern Oklahoma so whatever the cause, its a kickass show!

Of course I would love to “come one down” – I haven’t had a holiday for I don’t know how long.

I may need to go rob a bank first, so I can buy a plane ticket!! Not likely..

No, no violence….negative attitudes are left at the door and that includes ANY individual OR group. But if the DOP crap starts flying, there IS excellent trained security and it will be quickly silenced. This is a coming together of hearts, minds and souls and it’s a shame you make such a mockery of such a wonderful event. Put Morgellons aside and we’ve never HAD bands like this all in one place.

I’m saying be kind, be respectful and this event built on dreams, only the best wishes for the patients, and love, blood, sweat and tears, and it will be a LOVELY, BEAUTIFUL thing to behold, bring ugliness of spirit and yes, you will have to be removed . Whether your Morgwatch, NMO, MRF, XYZ, ABC, I don’t care…I’ll be making the final call and our security are pros, so just make sure if you decide to come to leave your hostilities and issues (EVERYONE) at the DOOR !