My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

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Tear Duct Saga

Tear Duct Problem Continues

I saw my eye doctor yesterday. He is pleased with how much the tear duct knot between my eye and nose has come down. I did have to call the eye doctor for a new Doxycycline prescription last Monday. As soon as I went off the antibiotic my eye became painful again, as the knot went back to feeling like a marble under the skin.

He did not probe the tear duct as he has planned, since it does seem to be getting better. He’s refilled the oral antibiotic, nausea med, and antibiotic eye drops. I will see him again in two weeks.

I talked to him about my fears that the long standing nature of this blockage means the tiny tear duct tube has grown shut. He assured me that even if that is the case, being patient and giving the area a chance to completely heal will not make opening up a fused tube any harder than it would be now.

I’m encouraged that he agreed to keep refilling the antibiotics. It has been my experience that my doctors are too quick to take me off them. They want to treat me like I was “normal”, and I’m sure NOT. For over a year, different docs kept taking me off the antibiotics too soon. And each time the infection came back with a vengeance. Whatever is going on in that duct – it’s definitely drug resistant!

Our routine is full of dealing with this tear duct – drops four times a day, oral antibiotic and nausea med twice a day, nasal wash, and hot compresses several times a day. I’ll keep doing my part, and God will do the healing in his own good time.