Amelia is a beautiful ten year old who has been diagnosed with Ataxia Telangiectasia.

Friday, 25 November 2011

Some happy news ........

At the moment I feel like I have taken a valium.
My whole day is in slow motion.
I have no caffeine or any kind of substance in me to make me move and think faster.
Today I looked at my speedo on the dashboard of my car because I felt like I was doing 20km/hr.
I was travelling at 60km.
BUT......
In 2 days I have already lost 2kg.
The diet explains that you lose a lot of built up fluid and toxins from your system in the first few days.
I am looking at my urine and it actually looks like wine !!!!!!!
(sorry for the visual!!!).

Anyway, today I was told that Amelia has come back a different person from America.
Her teacher said that she is doing really well.
She seems refreshed, happier and has more energy.
(I tried to refrain from explaining what she is currently like at home but couldn't help myself !!).
It has made me smile to know that some of the "old Amelia" is still alive.
I miss the constant smiles.........

Yesterday Amelia and I started and finished a project for school.
Sorry, I mean Amelia pushed me away and told me when to come back and help her.
She did not like any of my ideas.
I was just a slave doing what she told me to do.

She LOVED making this project.
It reminded me of her enthusiasm to complete projects last year.
So, I have decided that we are going to try and do 1 project a fortnight.
Something that is beneficial to her learning.
First on my list is money.
At the moment she has no idea about our currency and what it is worth.

I am looking forward to helping her learn life's basics because up until now she has not been co-operative or enthusiastic to me trying to help her learn.
I have found a way that she likes so I am happy about that.
Hopefully Tom will want to join in too.

And finally.......Tom.
His NEW favorite word is "Desperate".
"I was so desperate to get that chocolate".
"I have been so desperate at Kinder to get "the star of the day" ".
"I am looking desperate mum".

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Amelia's Project Links

About Me

Amelia is a beautiful eight year old who has recently been diagnosed with Ataxia Telangiectasia. Amelia's Project began on Facebook after Amelia was diagnosed in December 2010. My name is Amanda and I am Amelia's mum. Down this side of the page you will see "blog archives". This covers our journey from the start of Amelia's A-T diagnosis. I would like to share our journey.
Please email us at ameliasproject@yahoo.com.au