ELNA, just read through this massive "conversation" and am so sorry you got "persecuted"...people are people, the good, the bad, the stupid, the ignorant etc. Personally, I wish you the best, let go of any negative feedback you received here, you don't need that too!. I've been in your position many times on blogs and let them go for the very reason you are now upset. prayers to you, take care of yourself and keep the faith in yourself, no matter what, fibrofran17View Thread

Hi Fuzz, sorry for your troubles, hang in there it will get better!Reading your post it was VERY similar to my symptoms, perhaps you have Fibromyalgia??A rheumatologist would give a better assessment for that. It took me 20 years of the doc merry-go-round and thats what I was finally diagnosed with. You have many of those symptoms. Check out that route it could be your answer. Take care of yourself and put your energy into your health, best wishes , FibroFranView Thread

Hi Annette, I could've written your post, same thing, same story.I believe the pain comes from the neck and spreads from there, I have a curvature that didn't show on the MRI's. I watched myself constantly to see where I was misaligning my neck and adding to the problem and finally I conclude it's the way I sleep, stomach, forcing my neck into a position that somehow hits some nerves and starts the whole pain process all over again, although it never goes away it's definitely worse in the morning. Check out your sleep position and then find a pillow to align your neck better when you sleep. Also, stretching VERY slowly and gently, the muscles in your neck will really help. For pain I take tramadol, very low dose, and my life is much better than before. Best of luck. your search will get you better, fibrofranView Thread

I just saw this post and the first thing that came to my mind was Celiac Disease....I had it ALL my life, diagnosed just 2 years ago at 62!!!! It causes many many many symptoms due to lack of absorption of very necessary vitamins that effect our minds, and bodies. Please check into this, it could be your big answer. blessings, fibrofranView Thread

Mpathia, I relate to your story about a "destructive colonoscopy"...I became "awake" during the procedure and bolted up screaming. The nurses laid me back down. I had for got this happened till about a week later and then there was all this pain. I go back to doc and The doc told me "it doesn't hurt" period..I just can't take not being listened to, .I wanted to .....anyway, go to a new gastroenterologist, and find out what is wrong...first on your list. Take care of that first and see if your fibro calms down, it probably will. I feel your frustration, anger, etc etc, keeep truckin till you get listened to. fibrofranView Thread

Anon 160, Our bodies are so incredibly complex chemical, endocrine,electrical etc system....one small change in any are could cause who knows what? Our science is really in such infancy about the brain etc. ALl the studies are done ADDing a new component/med but not the reverse of eliminating it, very different story. The good news for you is that the "seizures" are subsiding. Only you really know your changes so keep a good watch over the next few months and let us know what your doc says, maybe it could help out someone else? I have learned, with fibro, that I should only take a tiny amount of ANY med period. I have to stick by that rule regardless of what the docs say or I would've been dead at least a dozen times until I realized this. Best wishes at your doc appointment, FibrofranView Thread

Hi anon, just wanted to add that I was put on Gabapention, 300 mgs three times a day, by day 2 I thought I was dying, tremors, sweats, double vision, shaking, chills etc etc I stopped and the symptoms went on for a week, I was a mess and scared to death. The pharmacist then tells me the doc should have started me lower and tapered UP!! So who knows, but gabapentin, a seizire drug did that to me, it was given for fibro. Check it out to give yourself peace of mind. fibrofranView Thread

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