End of Life Issues

When you are dealing with a loved one struggling with Creutzfeldt-Jakob Disease, you are coping or attempting to cope with a disease that steals your loved one away day by day.

CJD usually has a rapid course. It brings many questions and few, if any, answers. We wish the reality was different. Researchers are working hard to change that reality. You deserve answers and support as you cope with the illness of your loved one.

We offer some answers through the CJD Foundation pamphlet and our toll free HelpLine, 1-800-659-1991. Please call us to discuss your questions and concerns, ask for Debbie or Lori.

We are grateful to the Centers for Disease Control and Prevention for their generous funding which made this website possible, and to Dr. Lawrence Schonberger and Dr. Ermias Belay for their continued belief in us.