Information about health and health care, and assistance that may be available. This section of the forum is READ ONLY. If you know of a site or resource you think should be in this section of the site, please contact one of the Administrators or Moderators and let us know.

Forum rules
This section of the forum is provided as a resource for information regarding many aspects of illness, disability, and health issues, as well as advice services, benefits information, and other aspects of life that having IIH and disability can impact upon.

Many of the links and organisations listed in this section of the forum refer to "disability". Not everyone who has IIH will be classified as disabled - under the DDA (Disability Discrimination Act) a disabled person is defined as "someone who has a physical or mental impairment that has a substantial and long-term adverse effect on his or her ability to carry out normal day-to-day activities". Equally, some people who do meet the DDA's definition of disability may not be comfortable with being described as disabled. We use the word "disability" here, except where the word disability has a specific meaning, such as in relation to the DDA, as a shorthand for "disabilities and long term health conditions" - it's a lot quicker to type 'disability' or 'disablities' rather than "disabilities and long term health conditions" every time!

This section of the forum is READ ONLY, i.e. you can't reply to the posted topics. If have any comments on any of the posted links in this section, please use the appropriate area of the "discussion" area of the forums.

For some areas where there are a lot of different links, we've set up a "child board" to collect all of the resources on that subject together.

Know of a site or resource you think other forum members ought to know about? Let one of the Administrators or Moderators know - Celestia, Michelle, Didles, Emma.x, Katie30, or Missy - and we'll check the site out and decide if it's suitable to be included on this board.

As stated in our Terms of Service, which you'll find a link for at the very bottom of each page of the forum, we aren't responsible for the content of other sites, and our inclusion of hyperlinks to such websites does not imply any endorsement of views, statements or information contained in such websites.

As the majority of our members are from the UK, most of the information in this section is UK based, and about UK welfare benefits, advice services etc. We recognise though that we do get visitors here and indeed have members from all over the world. If you're not UK based, and you have links specific to your own country that you think would benefit others, please do let us know and we're happy to post links for other countries if you feel they would help others. Please do let us know if you have any links you'd like to share by contacting one of our Administrators or Moderators.

We do try and periodically check the links to make sure they're still pointing at the right place, that sites haven't moved, or disappeared, but if you find any dead links, please do let one of the Administrators or Moderators know by posting in the "Feedback, Comments, and Technical Queries" board so that we can updated the post where necessary.

The National Institute for Health and Clinical Excellence (NICE) is the independent organisation responsible for providing national guidance on the promotion of good health and the prevention and treatment of ill health.

NICE produces guidance in three areas of health:

- public health - guidance on the promotion of good health and the prevention of ill health for those working in the NHS, local authorities and the wider public and voluntary sector
- health technologies - guidance on the use of new and existing medicines, treatments and procedures within the NHS
- clinical practice - guidance on the appropriate treatment and care of people with specific diseases and conditions within the NHS.

There is currently no NICE guidance for the treatment of IIH, Our Patron Dr Sinclair has been commissioned by the Association of British Neurologists (ABN) to write guidelines for IIH and IIH UK's Research Rep sits on the Guidelines steering group. It is hoped they will become available and adopted by the ABN during 2017. After more data becomes available from research it is hoped that they develop into NICE Guidelines.