“If Obamacare hadn’t been in effect, he would have hit the lifetime limit of $1 million before he ever left the hospital,” said his mother, Jennifer McLelland, 35, of Clovis, Calif., using a common nickname for the ACA.

James, now 6, relies on a ventilator to keep him alive when he sleeps at night. The McLelland family has employer-sponsored insurance, but they fear that the health care bill the House of Representatives passed Thursday to replace Obamacare could have life-or-death consequences for James. They worry he could receive less coverage in the future, face a lifetime limit on coverage or even become uninsurable altogether.