Full - after one year the first time, after seven months the second time, will let you know for the current, third time.

$35,000/year 1999-2000. $20,000/year 2002-2008. $12,000/year on half-dose 2010-2011. This includes tests and co-pays. 2010-2011 also had to rent an apartment.

BC/BS and Medicare; covers cost of infusion and some tests

3

Deb

60 (at time of trial)

28 years total

2003-2004

neg/Singh trial

EBV, HHV-6A, HHV-7, CMV, Mycoplasm

twice

no

Flu symptoms day of infusion

Salt Lake City, Ut

No

no response

60

No change

4

Laurel

60

9 years at start of trial

2003-2004

Pos, WPI

Unknown

No

No

Salt Lake City, Ut

No

Good response, was on drug 15 months

80

24

3

Fatigue, myalgias, brain fog, PEM

Relapsed 4 1/2 years after going off drug, much worse than before drug

5

Laurel

40

4 1/2 year relapse

5/10/2011

Neg. Singh trial

Unknown

No

No

Flu symptoms day of infusion and next day

Salt Lake City, Ut

No

Good response

50 after 6 weeks of drug

1

Fatigue, myalgias, brain fog, PEM

Unknown, still on drug

6

40

21 years at the start of trial

6/7/2011

?

50 mg

Unknown

No

Yes - Singulair (allergies) Claritin (allergies)

Severe increase of flu-like symptoms for 72 hours following infusion. Also have bone pain, migraines and minor changes in mood.

No

Good response after one infusion. Noticeable PEM reduction by 4th infusion. (June 2011)

70

35

1

Fatigue, brain fog, PEM

Unknown, still on drug

7200

Medicaid. All infusion costs and Dr. visits.

7

Amy M

35

1991

2002

Pos

HHV-6,Herpes Simplex

Saline

Armor ThyroidBiestrogenTrazedone

Bad headaches day of treatment;Itching;Increase in all symptoms for first several months;Clinical depression;

Charlotte, Mc

Asheville, NC

Yes, but we've stayed in Asheville

After third round in 2006/2007 I enjoyed a three year almost remission.In severe relapse now

80

Almost a year

12 to 16 weeks

Cognitive function of all types;Stamina and ability to exercise;Pain reduction;Decrease influx symptoms;Balance;Sensitivity to light and noise disappeared;

Full - I am considering going back on. I had three years of decent health - most of the time between 75 and 80.I'm certain I didn't pay enough attention to pacing but the relapse trigger was a bad car accident