This blog is dedicated to discussing the ups and downs of a family with a child who has Mitochondrial Disease. A blog seems to be a good way to share our experiences as a family and to hopefully connect to others with similar experiences.

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Saturday, November 28, 2009

We have got a boy, and I mean BOY, on our hands. Whew. I tell you. We're sitting at a Starbucks in Dulles airport waiting for our final leg to Charlotte this afternoon, and Mr. Markos David Sprinkle is about as active a two-year-old as I've ever met. Of course, it might have something to do with the fact that he slept about 14 of the 18 hours we were on the plane from Addis Ababa to DC! He's experiencing many firsts today, and he's clearly eager to keep the string alive leading his mom all over the airport while I type. This is gonna be fun.

The trip in its entirety was a once-in-a-lifetime experience, and we can't wait to share our stories, photos, and videos. For the next 24 hours, however, we just want to get home and settle in a bit. Thanks to our family for making this so easy on us. Thanks to our friends for all your love and support. Can't wait to introduce you all to Markos.

Friday, November 20, 2009

Phelps and I leave tomorrow for Ethiopia to pick up our sweet boy, Markos. We will arrive in Addis Ababa on Sunday evening. We will be driven to the Gladney Care Facility to meet Markos on Monday. I can't believe the day is almost here! We will try to send out an update on the blog once or twice. We hope to return on the Saturday following Thanksgiving if his visa is ready on time. Keep us in your thoughts and prayers!

Meet Roxie

Roxie turns 9 in November of 2011. Although she has had to work hard her entire life to learn basic skills like sitting up or using her hands, she is a happy little girl. Roxie has Mitochondrial Disease which has resulted in profound hypotonia, epilepsy, sensory integration disorder, cortical vision impairment, and fragile health. She loves music, her family, and interacting with other children.