DSS- Truthful Kindness

Dementia Success Stories: “How we made a difference for self and those around us AFTER diagnosis”

A dementia brain-storming project by participants of PWD Perspective newsletter
Compiled and edited by Truthful L. Kindness (yes it is legal name)

Label: Truthful L. Kindness

Previous/current occupation(s?): Office Mgr, Secretary, & Mother

Nation, & state if desired: USA, California

Age at tentative diagnosis: 54yrs old

Year of diagnosis: 2012

How long for definitive diagnosis: still pending at UC Davis

Type of dementia, if known: probable LewyBody Dementia

Since diagnosis, what one or more action, success, or accomplishment do you take pride in? VERY involved in efforts to get value-recognition for voice and lived-experiences of Persons With Dementia (PWD) within dementia-professions: A) Involved with Dementia Alliance International’s video projects and Speaker’s Bureau -including oral presentation in ADI Conference of 2015; B) Involved with Dementia Mentors’ basic projects including two instructional videos, a poster and the weekly memory café groups; C) Editor for monthly newsletter “PWD Perspective”, which is a gathering of many links from projects of Persons With Dementia (PWD) and making available in a one-stop format online; D) Editor for this booklet “PWD Dementia Success Stories” available online and in hard-copy format; E)Blog my lived experiences with dementia symptoms at www.truthfulkindness.com, for dementia awareness efforts; F) Purple Angel dementia-ambassador and would love to begin efforts on the hospital wristband project -which was the very first project that caught my interest after diagnosis; G) Basic relationship-enhancement projects and dementia awareness among family and friends including things like writing my own memoirs; H) Various arts such as zentangles, crafts such as crochet & sewing, and music efforts including new instrument of Nevel Harp; I) Daily exercise of at least one mile per day.

What do you wish your primary Physician knew about dementia? Wish better understanding of Younger-onset dementia and awareness of online peer opportunities for PWD groups.

What do you wish your specialist Physician knew about dementia? Confident current specialist has competent understanding of LewyBody & Younger Onset, but deeply wish the last specialist had that understanding.

What do you wish your family knew about dementia? Wish they were motivated to learn more coping techniques now, (before they see the NEED) while I can see it happening and get confidence that my future relationships are more secure from unnecessary misunderstandings.

Date: 2015, Jan 17

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