Update on Baby Addison

We are hospitalized again, this time with Intussusception and she is having surgery at 12:30 today. She is a little fighter and we pray that today's procedures will give us some answers as to why her little body doesn't work quite right.

UPDATE: Our day started and ended the same way - with a screaming hungry baby. Addison was not allowed to eat after 7am today and her surgery started at 12:45. She just got to eat again at 5:30 and she was sooo excited.

At 12:00 they took us down to prep for surgery and I got to hold her until it was time to say goodbye. We gave her one last kiss and she looked sad as we walked out of the room. They took her to the OR and began her full thickness rectal biopsy procedure. It was scheduled to last 1 hour including the time needed to sedate her. After 90 minutes had passed, we finally got an update that said they were doing "the second biopsy" - wait, what! She was only supposed to have one.... so we were confused and worried. No one could tell us anything but we knew she was in good hands and there would be a reason it was needed to cut her twice.

Finally, a little after 3:00 the surgeon came to speak to us. He said the biopsy was complete and Addison was on her way to MRI. He said the reason it took so long was that the first sample wasn't big enough, and pathology needed a bigger piece. So they decided to use a little suction gun to do an easy second smaller piece. Several times they tried to but were unsuccessful. They finally had to do a whole second biopsy identical to the first. So that's what made it so long.

Next they took her to MRI - we didnt get to see her between the two. Another hour and a half and FINALLY someone called for us to go back to recovery and see her. She was awake and starving - her little cry was so sad and distorted from the breathing tube. She saw me and gave me a big silly smile before chowing down. We are now back in her room and she's very very sleepy. The results of her biopsy and MRI will not be known til Monday.

So the whole process ended up being about 5 hours under anesthesia and she is pulling out of it now like a champ.

We also learned that a bladder infection is the reason she has been in so much pain yesterday and today. I guess it was pretty bad and they put her on a large dose of antibiotics to get it under control. They believe she could have a problem in the tubes that carry urine to the bladder so she will have a catheter inject dye into her bladder and more testing next week. But right now, we are just focused on getting her good enough to go home this weekend sometime.

Ive been following your journey. What a little firecracker. Im constantly saying a prayer for you guys. Keep up the faith and stay strong for each other. Please keep us posted on your precious Addison :)

Thanks ladies.... maybe today we will finally be able to move toward the 'fixing it' part - thats what ive been dreaming about. I hate knowing she is in pain, and there's nothing I can do because we don't know why. 4 long months of this...we are ready for some answers.