CFS/ME is a debilitating and still misunderstood disease that is estimated to affect nearly one million Americans. According to a press release, hundreds of dedicated professionals will gather at the conference for a discussion about the specifics of this disease, as well as its relationship to other diseases like fibromyalgia.

Highlights of the meeting include:

Alison Bested, MD, FRCPC, clinical associate professor at the University of British Columbia in Canada; will talk about how to diagnose and treat CFS/ME and multiple chemical sensitivities.

Vicky Whittemore, PhD, program director of Synapses, Channels and Neural Circuits Cluster (of the National Institutes of Health) will discuss the renewed CFS/ME research program and share tip on getting research funds.

Øystein Fluge, MD, PhD, and Olav Mella, MD, PhD, Haukeland University Hospital in Norway; will present the latest updates on their trials of Rituxan (rituximab) as a disease-modifying treatment for CFS/ME.

Some sessions will debate diagnosis methods and treatment approaches, and part of the conference will be focused on giving patients and their families an opportunity to find out more about the latest updates in the field of CFS/ME and related diseases.

Advances in the areas of brain abnormalities, post-exertional exacerbation of symptoms, fatigue, or pediatric cases and potential treatments, among others, will also be discussed during the conference.

The biennial meeting will take place at The Westin Fort Lauderdale Beach Resort. More information about the location, schedule, and registration can be found here.

I don’t have an issue with the article, it’s great. But I do have one request related to titling such articles:

Please do not call ME/CFS “chronic fatigue” if you can help it.

“Chronic fatigue” is one symptom, ME is a disease and CFS is a syndrome, a set of related symptoms that have a fairly predictable course/interaction. To call either “chronic fatigue” is an issue because doctors conflate them all the time and it makes my “job” as a patient harder. I do not have “chronic fatigue”- I have chronic fatigue syndrome, and it’s left me extremely disabled. While chronic fatigue is serious, on its own it is not an illness, but part of a bigger picture. It’s part of our picture yes, but our other symptoms are as or MORE important by far.

This conference was not about the Symptom, it was about the Syndrome and related illnesses – ME + GWS + FMS.

Disclaimer:

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