Our Boston trip has been postponed. Camden is not ready. All phycisians here at CCMC and at Dana Farber are in agreement that his stem cell harvest will not take place until ? next week, as originally planned. The urgent rush for today was based upon lab values that are still changing. It is best to wait until Camden is truly ready and not have to undergo this procedure twice. At this point, we plan to be home today as long as he increases his fluid intake and tolerates medications by mouth. I will continue to update, please continue to pray!!

Tara

7/9/2013 04:07:56 am

Praying!!!!!

Gramma nancy

7/9/2013 09:57:32 am

Cam, am praying &will not stop !!!.
Lv&Hugs to all of you :)

Cynthia Melnick

7/12/2013 08:42:40 am

I am praying with my whole heart and soul for Camden. Ron and my son Jeff have known each other since Little League so I know the family well. I hope and pray that Camden can pull through this, he has alot of support from family and friends and may God lay his hands on your sweet adorable little boy and bring him back to you healthy. If there is anything I can do, please do not hesitate to contact me. Love and hugs to you, Camden, Ron, his little sister and the Soucy family

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Mommy & Me

Mom﻿my

﻿She'﻿s ﻿goi﻿ng to keep everyone up to ﻿date about my progress. Isn't she the best mommy ever?

﻿Mommy thought long and﻿ hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

Diagnosis: May 9, 2013Surgery: September 2013Transplant: September 2013STRICT ISOLATION UNTIL January 2014Radiation: November 2013Antibody: January 2014END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO)**FINISHED ALL TREATMENTJULY 25, 2016

5 years from diagnosis!!May 9, 2018​5 years from frontline!! June 9, 2019