"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

Happy Birthday, Sue!

Let me get a few updates out of the way. First, the bed is fixed! Thank goodness. It was brought back to life yesterday morning. After me spending the entire morning on the phone with technical support on Friday and then another three hours yesterday by a repairman all it came down to was one bad cable. It was that simple.

Twenty-four hours later it is still working perfectly. By now I have run it through all the functions both to test then to actually use them on Ryan. It’s true in so many parts of life, you don’t appreciate what you have until it’s gone.

Also of importance, Ryan’s baclofen was reduced again today from 60 mcg to 45 mcg. A twenty-five percent decrease! Last year at this time he was at 400 mcg, so he is at 11.25% since then. I already scheduled the next appointment for April 16th, pending no negative effects from this reduction. My plan is to take him to 30 mcg. Then… the following one will trial him off the medicine entirely!

Now, the most important thing is today is Sue’s birthday. Word is, she turns 29 again this year. If you’re out on Facebook and have the time it would be nice to send her a note. I tried to pull off the birthday celebration equals a birthday suit logic, but I think I just got myself in trouble.

That’s great news that you were able to get Ryan’s bed fixed so quickly! One less thing to worry about. I’m so happy (and relieved) to know that Ryan continues to tolerate the baclofen reductions well. I wonder if there are any other meds he may not need? He looks so wonderful, so whatever it is you’re doing, it’s working!

Wishing your beautiful wife a very Happy Birthday. You two hit the jackpot when you found each other. I wish you both and Ryan a nice day together, hopefully out in the sunshine at some point.

Ken, So glad bed is fixed,one less thing. Hoping and praying Baclofen reduction goes well and Ryan is liking his FES:)If it’s as nice down there as it is here ,hope you can out today …and wishing Sue a very nice Birthday!!!! Love,Gail

Give Sue a hug — this could be the start of something big! 😉
Have a lovely birthday, Sue. It’s a beautiful Spring day just for you!
Good news that the bed is fixed. Praying that the Baclofen reduction goes well. Love and prayers today and every day.

Hope you had a nice day Sue – Happy Birthday!! I hope you got to enjoy some time on the pato with your favorite boys!! So glad to hear about another baclofen reduction – that is really huge and amazing from where Ryan was last year!
I’m hoping Kari will be home Thursday. Happy Easter!
Love to you all – SHSP
The Beebes