can partners in health and sing for hope save the world

doubly breaking good news for pro-youth entrepreneurial revolution- from Budapest and New York

this breaking news report comes from chris macrae writing from budapest's and soros' central european university's commencement celebrations where paul farmer delivered an eyeopening talk- it turns out that since the earthquake destroyed the main nursing school in haiti he has just rebuilt it and taken on responsibility for training medical capacity on haiti

please help re-edit following circulation draft- if you didn't want to be linked here tell me and I will edit it out ; if you wanted different links in your name tell me; if you want to be added here, what link maxmiises your collaboration with others mentions - chris.macrae@yahoo.co.uk

monica yunus opera singer and world leading model for stars to give back to peacekeeping youth in communities

Carrie Rich global good fund DC- invests in youth using carrie's curriculum paradigm of community healthcare; naila experience of grameen phone experiments from getgo; runs her own family's telecentre for women business; currently in maryland region hosting days when 2000 people can get free healthchecks informally linking in part of john hopkins extended network

Ron passionate about massive collaboration and how astronauts can inpire youth round this

Kathryn graduating in healthcare from alabama and student competition leader for haiti; zasheem with me in budapest to advance his groundbreaking ideas such as free nursing college and adam smith would value bangladesh at 42 more than any other 42 year old movement economists or anyone have got up to; taddy the orginal founder of free universities in every microentrepreneurial practice that youth can rebuild nations

Mostofa linking in dhaka's paradigms of lets use aid (or other finding) money both to do a milennium goal and embed action learning

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by coincidence this morning's mailbox included news of main winner of rockefeller competition- as its on neglected diseases it seemed relevant to post here but remaining mails will get back to the 2 cases mentioned

MEDICAL INNOVATIONS FOR NEGLECTED PATIENTS

SPEEDY DELIVERY: PUTTING POOREST PATIENTS AT THE CENTER OF DRUG DEVELOPMENT

Only 10 percent of the world’s spending on health research is delegated to diseases affecting 90 percent of the world’s population, such as African sleeping sickness, chagas, malaria, pediatric HIV/AIDS and leishmaniasis. Through its patient-centered research and development model, Drugs for Neglected Diseases (DNDi) discovers, develops and distributes new, improved and affordable medicines for illnesses largely unknown by much of the world. DNDi’s collaborative partnerships with governments, research institutions, NGOs, pharmaceutical and biotechnology companies ensure greater research and knowledge sharing that expedites the development processes and allows faster delivery of much needed drugs. DNDi has also developed new drug licensing agreements which put patient access as the priority. DNDi has delivered six new treatments with the goal of producing 11-13 by 2018; 90 percent of people suffering from African sleeping sickness have been treated with DNDi-produced drugs.

Why it’s Innovative:DNDi rallies all relevant actors in drug development around specified goals to “de-link” the cost of R&D from the price of the final product. This has required several innovations—including partnerships between historical adversaries (such as activists and pharmaceutical companies) and the development of licensing agreements that put patient needs first.

WHAT IS THE INNOVATION AND HOW DOES IT ADDRESS A PRESSING PROBLEM?

Right now, millions of people are suffering from deadly diseases which are, for the most part, unheard of in many parts of the world. Neglected diseases affect the poorest communities across Africa, Asia and Latin America, but since they do not represent a lucrative market for the pharmaceutical industry, little to nothing is invested to develop life-saving treatments. The Drugs for Neglected Diseasesinitiative(DNDi) delivers new treatments for neglected diseases that afflict millions of the world’s most vulnerable people.DNDi carries out patient-centered research and development (R&D) to discover and develop affordable medicines for patients suffering from Chagas disease, leishmaniasis, sleeping sickness, malaria, pediatric HIV/AIDS and specific filarial diseases. DNDi’s approach is to establish collaborative partnerships with public sector research institutions, particularly in disease-endemic countries, pharmaceutical and biotechnology companies, academia, non-governmental organizations, and governments worldwide. DNDi manages every phase of the drug development process – from drug discovery to preclinical research to clinical trials to support for large-scale implementation on the ground – and develops new treatments specifically adapted to the needs of patients. Once developed, the treatments are affordable, non-patented, and made available as public goods.

WHAT EXISTING PRACTICES INSPIRED THE INNOVATION AND HOW DOES IT REPRESENT SOMETHING NEW?

In the late 1990s, Doctors Without Borders/Médecins Sans Frontiéres (MSF) doctors were increasingly frustrated at their inability to treat patients because needed medicines were either unavailable, toxic or did not exist. In response, MSF committed a portion of its 1999 Nobel Peace Prize funds to develop an alternative model of R&D for drugs, and co-founded DNDi in 2003 with 5 public sector research organizations.

The traditional industry business model for pharmaceutical innovation requires consumers to pay high drug prices in order to “recoup” R&D costs. The DNDi model pulls together existing research capacity around well-defined goals in a way that de-links the cost of R&D from the price of the final product.

Innovative partnerships have been required to achieve this. For example, DNDi harnesses the expertise of pharmaceutical companies on terms that will guarantee affordability and access for patients. This has included the negotiation of increasingly favorable licensing agreements with companies that reduce exclusivity, ensure the widest possible geographic research and manufacturing rights, and aim to achieve the lowest possible sustainable price.

DNDi’s approach overcomes intellectual property barriers to innovation and access and promotes more open exchange of scientific knowledge and data than in the traditional industry business model, ultimately avoiding duplication, reducing R&D costs, and speeding up the R&D process for the benefit of patients.

PLEASE DESCRIBE THE SOCIAL IMPACT TO DATE, AS WELL AS POTENTIAL IMPACT IN THE FUTURE.

DNDi has delivered 6 new treatments, reaching millions of people.For example, DNDi has developed a new treatment for African sleeping sickness, a parasitic disease endemic in sub-Saharan Africa that, left untreated, is 100% fatal. Currently, over 90% of people suffering from African sleeping sickness receive a safe and effective combination drug called NECT, developed by DNDi and its partners. NECT is the first improved treatment for sleeping sickness in 25 years and is currently included on the WHO’s Essential Medicines List. Prior to NECT, the most commonly used medication was melarsoprol -- a drug so toxic it killed one in 20 patients.DNDi’s objectives are to deliver 11 to 13 new treatments to patients suffering from neglected diseases by 2018, to ensure equitable access to these treatments, and to build a robust pipeline of new drug candidates. With six new treatments developed in less than 10 years, DNDi is well on its way to achieving these goals and to bringing the best science to the most neglected.DNDi is showing that a paradigm shift is possible in which R&D becomes needs-driven rather than profit-driven, and essential-health R&D is considered a global public good. This model could serve as an important example in international policy dialogues, such as the WHO’s exploration of new models to finance and coordinate essential health R&D, including a proposed new global R&D treaty.

On reflection the big lesson for me from visiting Budapest with zasheem this week is that paul farmer sees the funds/goals of global aid as a means to the end of embedding local capacity to serve health through training - now he explicitly has rebuilt Haiti's main training centre after the publicly owned one was destroyed in the earthquake, it has the chance to become the epicentre of all the greatest free healthcare colleges and curricula .

Generally the bottom-up NGO has greater partnering potential than Yunus related concept of the bottom-up business (social business) - at least until the BBC gets its altogether in celebrating all bottom-up collaboration networks that can save youth's world. Also when I asked Yunus at Dhaka visit a month ago, if he would contribute to Rajiv Shah's first global education conference in DC in August- he said no he doesn't go to AID anymore. In a stroke that clarifies how only the bottom-up NGO model can keep bangladesh youth free now

More on my reflection at http://normanmacrae.ning.com/forum/topics/collaboration-7-wonders-o... if it is possible in the next 90 days to explain to such people as sir fazle abed and paul farmer how to plant labs all across their organisation that rehearse how to develop 10 minute training modules of the same format as pioneered by sal khan then we can linkin millions of youth to action learning that replicates the greatest community solutions ever innovated

I am taking my daughter on holiday for a week; taking for holiday play: the $300 dollar software that Khan uses

sent this: Khan Academy - truly inspirational - staff of 23 reaches 43 million students in 216 countries in 4 years. All on line. Allows collaboration, mentoring. Training anytime, anywhere. Now in 20,000 class rooms in the US. Metrics include: where student is stuck, which exercises work best etc..etc. Class time is no longer lecture based, but where students do homework. Teachers move from "lectures" to high value time with children that need help. Its free. has real advantages over MOOCs. attached is video:

dear monica - thanks for today's mail with fabulous news but tad too short notice for my diary - will there be opportunities during the year to see these when I and friends are travelling through new york particularly want to introduce my 16 year old to the ide!?

this breaking news report comes from chris macrae writing from budapest's and soros' central european university's commencement celebrations included a wondrous talk from paul Farmer - it turns out that since the earthquake destroyed the main nursing school in haiti Paul Farmer has just rebuilt it andso expicitly taken on responsibility for training medical capacity on haiti

PIH has posted an exciting new position on our website for a Global Nurse Educator. This position will work extensively in Haiti for the next year accompanying our Haitian nursing leadership team on nursing quality and education efforts. Kreyol/French speaking strongly preferred. If interested please go to the PIH website www.pih.org under Join our Team tab at the bottom. This position is listed under domestic positions: Global Nurse Educator. You must apply via the online system.

Organizational Profile Partners In Health (“PIH”), headquartered in Boston, MA, is an internationally recognized non-profit organization whose mission is to provide a preferential option for the poor in health care. Through its service delivery, training, advocacy and research, PIH works globally to bring the benefits of modern medical science to those most in need and to serve as an antidote to despair. PIH operates sites for clinical care, research and training in 10 countries (Haiti, Peru, Russia, Boston, Rwanda, Lesotho, Malawi, Kazakhstan, Mexico, the Dominican Republic) and has a growing network of affiliated organizations and initiatives in several other countries, including Nepal, Burundi, Mali, Liberia, Guatemala, and Togo.

Overall Responsibilities

The Global Nurse Educator (GNE) will work directly with the clinical team to develop strategy, implementation and evaluation of nursing educational initiatives for PIH. The GNE will be responsible for curriculum development in a number of clinical areas including foundations of nursing care, non-communicable diseases, mental health, and palliative care and pain management, and will develop didactic and participatory educational materials for these clinical areas in collaboration with PIH program and clinical staff in Boston and a variety of PIH sites. The Educator will also assist in developing monitoring and evaluation activities to evaluate the success and impact of educational initiatives, in collaboration with the PIH Monitoring and Evaluation team and others. The GNE will work closely with PIH in- -country Clinical Nurse Educators and provide support for this diverse and growing team. This position is based in the US with travel to PIH country sites and periodic extended assignments.

•Serve as a clinical resource for the Boston and site-based Training Teams.

•Develop curricula for PIH nurses and other PIH care providers.

•Review and revise existing curricula and curricula in development to ensure accuracy of clinical content, cultural content, and appropriate pedagogical approaches.

•Develop new educational curricula and materials for use in PIH clinical settings.

•Provide input from a nursing perspective for provider educational programs and projects.

•Provide leadership and technical assistance in designing and implementing nursing education and training programs, ensuring the highest standards of quality, as well as training design that allows for effective scale up and adoption by other PIH sites and the Ministries of Health in the countries where PIH operates.

•Liaise with the site-based PIH Clinical Nurse Educator teams to develop specific site based educational strategies.

•Collaborate with the PIH Monitoring and Evaluation Team and other teams to provide effective monitoring and evaluation activities for nursing education and training initiatives.

•Work with in-country clinical and training team staff to ensure cultural and clinical accuracy of materials.

•Ensure cross-site communication and coordination between key nursing initiatives, with the goal of developing an integrated pedagogical framework for nursing education across PIH and the Partnership (Brigham and Women’s Hospital, Harvard Medical School, and the Harvard School of Public Health).

•Assist with other nursing and medical education and training initiatives as needed.

Qualifications

•Bachelor’s degree in nursing, Master’s degree in nursing or related field

•Demonstrated experience in providing unit based clinical education.

•Demonstrated experience in development of nursing curricula, preferably in resource poor settings.

•Ability to work productively in highly collaborative and diverse settings while also able to function independently.

•Ability to work and take initiative independently, and work collaboratively with a variety of diverse teams.

•Strong writing and proofreading skills.

•Excellent communication and interpersonal skills, with maturity and poise to interact with executives at the highest levels of government, business, and academia, and to interact professionally with culturally diverse staff, clients, and consultants.

•Demonstrated competence to assess priorities and manage a variety of activities in a time-sensitive and complex environment, and to meet deadlines with attention to detail and quality.

extract As well intentioned as they can be, both aid and charity take the subtle view that there is something inherently wrong with the people being served. Otherwise, the argument goes, why would they need our help?

In reality, disadvantaged people are systematically deprived of the basic rights that would enable them to rise out of poverty — food, clean water, decent sanitation, housing, jobs, health care and education. The ambitions of aid are often too small, focusing on modest, short-term interventions instead of the long, painstaking work of building systems to ensure rights, in partnership with the government and local institutions.

Partners In Health builds open-ended partnerships that don't end when the earthquake donations dry up, offering a greater chance at slow, lasting progress on entrenched problems of poverty and inequality.

In Haiti, this denial of rights is not innocent, but the result of centuries of international interference and oppression. A couple of recent examples: Just a decade ago, on claims that Haiti's government was interfering with the elections of eight senators, the United States blocked international loans to improve water and sanitation systems. In 2010, less than a year after the earthquake, a U.N. peacekeeping force inadvertently brought an epidemic of cholera to Haiti by dumping its sewage in a major river system. Cholera has since killed more than 8,000 people and sickened more than one in 20 Haitians.

Instead of fixating on personal failings of the people of Haiti, we should work with them to build systems that ensure access to education, health care and food. The rights-based approach guides us to imagine doing more than offering castoff goods and services — the XXL T-shirts or the expired medicines or the spring break service trips. Pragmatically, a human rights approach works better because it confronts difficult, interconnected problems with significant solutions, not small, cheap interventions like chlorine for purifying drinking water or transitional shelters that, by themselves, offer little hope of lasting change.

Partners In Health, along with its sister organization, Zanmi Lasante, works to improve the quality of care in the public health system, collaborating with Haitian communities and the government to train health care workers, develop new services and improve rundown facilities, including building top-quality infrastructure.

In the case of University Hospital, the Haitian government identified the need for a national teaching hospital after the earthquake, and Partners In Health/Zamni Lasante worked alongside the Haitian Ministry of Health to design and construct the $17 million facility, with the help of many in-kind donations. Through a public-private partnership, the government and Partners In Health/Zamni Lasante will contribute to operating costs, and management of the hospital will gradually transition to the government over the next 10 years.

Partners In Health builds open-ended partnerships that don't end when the earthquake donations dry up, offering a greater chance at slow, lasting progress on entrenched problems of poverty and inequality. We call this "accompaniment," to convey a shared journey.

Developing partnerships based on empathy and pragmatic solidarity — not pity or even sympathy — is the essential first step in serving people in need.

Early on May 23, nurses and doctors dressed in blue scrubs and prepared for University Hospital's first surgical case. The instruments were sterilized, positive air pressure minimized the risk of infection, and Haitian nurses provided anesthesia. Dozens of partners — corporations, generous donors of time and money, medical professionals, and Mirebalais housekeepers — had worked together to make this day a reality. It wouldn't have been possible without years of work to strengthen the health system in the Central Plateau, so that patients could be connected to care from their homes to the hospital.

The patient was a 60-year-old Haitian woman and mother of four, diagnosed with breast cancer by a Haitian doctor. A Haitian surgeon from Mirebalais and his American counterpart worked side by side in a fully equipped operating room to perform the mastectomy. As with all work at University Hospital, procedures like this serve two purposes — first, and most important, to heal the patient with a standard of care that compares to a top-quality teaching hospital anywhere else in the world, and second, to train Haitian medical professionals to provide that kind of care. With this operation, the Haitian woman has received new hope and a greater chance of living longer with a better quality of life.

In the United States, there would be no question that a woman with breast cancer receives care — including a mastectomy — to save her life, and health facilities provide it routinely. Yet development experts debate whether this care is worth the cost in low-income countries. Should we spend the money on and invest the time in systems, with the necessary infrastructure, equipment, supply chains and drugs, to treat complex cases like cancer?

The patients in need of care and their doctors always say yes. Our role is to support them.

University Hospital was built in less than three years, long enough for the majority of earthquake responders to come and go. It will remain, serving the people of Haiti long into the future, as a testament to how much can be accomplished when you view the people you seek to help as equal partners.

Stephanie Garry is a former Tampa Bay Times staff writer who served in the Peace Corps in the Dominican Republic from 2009 to 2011. In 2011, she worked for Fonkoze in Port-au-Prince, Haiti, before joining the Partners In Health staff in Boston. Views are her own.

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When the first patients trickled into Hôpital Universitaire de Mirebalais (University Hospital) at the end of March, they triggered a cascade of seemingly banal computer tasks that represents one of the largest undertakings in the history of open-source electronic medical records (EMRs).

In the U.S. and other developed countries, hospitals invest millions of dollars on proprietary medical record systems that gather enormous volumes of data. Such hefty investments aren’t an option in the countries where Partners In Health works, and rarely is the necessary infrastructure in place. In Haiti and other PIH sites, clinics and hospitals have often relied on paper records, which can be difficult to manage and easily destroyed in a fire or flood.

In recent years, however, a global community of doctors, software developers, academics, and tech enthusiasts has come together with a single focus: Building and deploying EMRs that are open source, meaning anyone can use the application for free and modify the code to meet their needs. No patents, no licensing fees, just a collaborative effort. PIH was an early adopter. In 2004, we collaborated with the Regenstrief Instituteto create OpenMRS, a formal community of individuals and organizations that contribute their coding expertise to a single open-source EMR platform. Nowadays, software developed under the OpenMRS banner is used in more than 40 countries.

But building an open-source EMR for University Hospital—a 300-bed teaching facility in central Haiti with seven different p...—would be a “feat of epic proportions,” as Renee Orser, business analyst for PIH’s medical informatics team, said. It had to be highly intuitive for a staff with a wide range of computer literacy. Furthermore, as anyone from PIH’s Monitoring, Evaluation and Quality teams will tell you, collecting data is only useful if they can be extracted, analyzed, and put to work.

Dad (Norman Macrae) created the genre Entrepreneurial Revolution to debate how to make the net generation the most productive and collaborative . We had first participated in computer assisted learning experiments in 1972. Welcome to more than 40 years of linking pro-youth economics networks- debating can the internet be the smartest media our species has ever collaborated around?

1972: Norman Macrae starts up Entrepreneurial Revolution debates in The Economist. Will we the peoples be in time to change 20th C largest system designs and make 2010s worldwide youth's most productive time? or will we go global in a way that ends sustainability of ever more villages/communities? Drayton was inspired by this genre to coin social entrepreneur in 1978 ,,continue the futures debate here