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My father, a neuro, tried to get me into a study and couldn't, so he started scanning the haacke protocol down here, and found an IR to treat me. We should be referring patients for the venoplasty by mid june. hubbardfoundation.org. Hope this helps.

devinhubbard wrote:My father, a neuro, tried to get me into a study and couldn't, so he started scanning the haacke protocol down here, and found an IR to treat me. We should be referring patients for the venoplasty by mid june. hubbardfoundation.org. Hope this helps.

Hi Devin,

So is there a wait list started to get treatment when/if the time comes?

ndwannabe wrote:I also asked them if they had any patients with negative CCSVI diagnosis. he said they had 4 (out of 15).

I wonder about the rate of 26% that are found without ccsvi.. If that number is from the dopplar or mrv , it sounds "normal" with the known false negative rates. But if they are quoting those negative rates from the "Gold Standard" I would have questions, since most others doing the procedure seem to be running at less than 10 % without blockages or valve problems ..............

The further down the list you are, the more experienced they will be by the time they get there! I agree that finding CCSVI in 74% is low compared to other doctors. Either the other docs are overtreating or the new guys are missing CCSVI in some patients....

"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

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