Saturday, June 28, 2014

Delaneys Update

Delaney has worked tirelessly for the past 4 days trying to eat, but unfortunately Delaney had to have another feeding tube placed this afternoon. There were a couple key factors in the decision to place another tube mainly weight loss and hydration. Delaney weighs 31 lbs and she can only expierecnce a weight loss of 10% or less, which is roughly 3 pounds. The first 3 days she lost 1 pound and by the afternoon today she was close to 2 pounds lost. Her margin of weight loss is small. Secondly, by the afternoon today Delaney's intake of water or any liquid stopped. By 5 pm she had only drank 13oz of liquid. And hydration starts to become a real concern, which could lead to hospitalization. Also her activity level dropped dramatically and she began napping more frequently. Therefore, the tube was placed once again. And thanks to Delaney's OT therapist who monitored her so closely each day and Delaney's home health nurse who has been on stand by each and everyday the tube has been out to come by and place the tube back in, at a moments notice. Delaney, Mommy, and Daddy are not discouraged, for we know the process will be long, but, we will regroup, rehydrate, refuel and fiercely persist the joys of eating once again. On another note, Mommy and Daddy enjoyed so much, simply just to hold, kiss, and nuzzle Delaney's soft cheeks once again, without the interference of her feeding tube. Thank you for all the prayers love and support. As always....... GO TEAM DELANEY!!!