British Paediatric Orphan Lung Diseases (BPOLD)

BPOLD Monthly Returns - how it works

BPRS members can register for BPOLD via this site by using the register link on the top menu or by clicking here.

Once registered you will receive a monthly text email containing two links
(see the example below - click on the image for a larger view):

If you have not seen any patients with one of the nine listed BPOLD conditions
then a single click on the link will record that you have not seen
any cases to the database.

If you HAVE seen one or more cases then a single-click on the bottom link
will display a web page where you can quickly enter only the number
of cases seen (see example below).

These cases will be added to the database as 'Unconfirmed' cases
and you will be able to type and print the patients names (which are
not added to the database) for future reference.

A follow-up email, containing all required consent and information forms
as attachments, will be sent to you requesting that you input more
details on your unconfirmed cases when you have the time. A click
on the contained link will display a page where you can input full
details on each case (see below). If you do not have time to input
details on all of your unconfirmed cases you can save the email and
use the link to update at your
convenience.

BPOLD is funded by the Edinburgh University Research and Development Fund

BPOLD wishes to acknowledge funding support for 2017 from Breathtakers UK