Your Headache Stories, Part 3: From M

I remember my first ‘sinus headache’ when I was maybe 11 or so . . . that’s what my mom called them. I suddenly hurt so bad I could not finish some stupid book report I was working on. So we called them sinus headaches up until I was around age 30. We both suffered and used heat compresses and rubbed our temples, etc. The ‘family pain’ — one of many, ha, ha, ha.

After many sinus infections, and debilitating painful headaches, when the mask of pain would descend over my face, sinus surgery had become my only option. The doctor told me that one of the side effects of the surgery could actually be the transformation and worsening of my migraines but I had to take the chance.

Good news is I barely have any snot anymore . . . never blow my nose, no infections. Very bad news . . . my migraines transformed and continue to transform into what I think of as another person/entity in my life. And he is definitely running the show. No one around me understands this pain in my life except for one person, who suffers also. If I did not have him, I am not sure what I would do.

I have a great neurologist. He runs a headache center in NYC, has written books, even developed an all natural pill to help migraineurs. No cure yet. I have been on Imitrex, Xanax, Valium, Effexor, Wellbutrin, Relpax, Zomig, Maxalt, magnesium drips, Botox, Percocet, hydrocodone, steriods, Zonegran, Frova, niacin, Migrelief. And currently feel just about as bad as I ever have. And pretty hopeless.

So, for now, I am sticking with the regimen of Zonegran, Maxalt, magnesium drip, and opiates as needed. This beast wears you down . . . most days I just want to get by. It has changed who I am. From energetic and outgoing to tired, pained and secluded. I only hope that I turn ‘a corner’ soon and can tackle the beast.

One Response to Your Headache Stories, Part 3: From M

I’m getting ready to add Zonegran to my regimen tomorrow. I know that frustrating feeling that I’m trying one more pill that will get me nowhere. My doctors and nurses are great and want to help so badly. I wish you better luck on your pain management journey and wish it for myself, too.