John has passed away on 1/11/11. His long battle with this horrible disease is over and as everyone in this forum knows, they gave up so much in their lives to this disease. He was down to about 100 pounds, gave up the urge to swollow 5 days before passing. I will miss him terribly but I also feel at peace knowing that his suffering is over, it seems I have been grieving for the last 18 months over the life we had together. I have been checking into the forum over the past few months to see how everyone is doing and want to say that finding this forum and being part of it was the best thing I found. My friends will be making a donation to the Lewy Body foundation in John's memory. Thank you all for the support in valuable information that was obtained from this forum and all of you that are dealing with loved ones suffering from this illness, stay strong and take care of yourselves also.

B

Fri Jan 21, 2011 1:55 pm

mockturtle

Joined: Wed Dec 30, 2009 1:46 pmPosts: 3213Location: WA

Re: John's long battle is over

B, I guess I never got to know you on the forum but can certainly appreciate your mixed feelings right now. To lose him is sad but to see him continue to suffer is sadder still. God bless you and give you strength. Hugs.

_________________Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Fri Jan 21, 2011 3:33 pm

JeanneG

Joined: Fri Dec 31, 2010 3:07 pmPosts: 1039Location: Minnesota

Re: John's long battle is over

B, I am so sorry for this final loss in the long series of losses you have experienced. I am glad you are at peace.

Thank you for the thoughtfulness of your memorial tribute. Your friends' contributions to honor John will do much good.

_________________Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012

Fri Jan 21, 2011 3:38 pm

Gerry

Joined: Sun Oct 21, 2007 4:18 pmPosts: 835Location: Acton, MA

Re: John's long battle is over

B, Take care of yourself, it will be a void that will never be filled, but knowing that John is no longer suffering has to bring some peace.My thoughts are with you and your family.Fondly, Gerry

B, having recently experienced the death of my dad, I know the mixed feelings - the sadness and the relief. Watching a LO suffer is no small task. It is agonizing. Knowing they are at peace now is like have a huge elephant lifted off of us. Take care of yourself. Lynn

_________________Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Fri Jan 21, 2011 4:23 pm

irene selak

Joined: Sat Jan 03, 2009 2:59 pmPosts: 1978

Re: John's long battle is over

B, Please except my deepest condolences on your loss of John, I know it has been a long haul for you too and I am grateful John is finally at peace and the chains of LBD have been released, Please take care of you now !

B, You have been on the Forum through all the ups and downs of this illness. You have been taking good care of John for a long time. You came knowing very little but left here on these pages roadmarks for others to follow. Through it all you have been a good friend. I hope the messages of condolence will help as you walk through this sorrow. We all love you.

Dorthea

_________________"See this lady she's 85 but she's nice", This is the way my husband, Mr B., introduced me in 2006 to the people only he knew. Death due to pneumonia. Lewy Body Dementia diagnosed post mortem at Mayo Clinic in Jacksonville Florida.

Sat Jan 22, 2011 2:40 am

karenpm

Joined: Tue Dec 23, 2008 8:52 amPosts: 154Location: Michigan

Re: John's long battle is over

B, I am sorry for your loss. You & your family are in my prayers.Take care.

You cannot post new topics in this forumYou cannot reply to topics in this forumYou cannot edit your posts in this forumYou cannot delete your posts in this forumYou cannot post attachments in this forum