Category: Motor Neuron Disease

As of today the “Scottish Motor Neurone Disease Association” have rebranded to become “MND Scotland”.
Their new web site can be found here.

New Identity for the Scottish Motor Neurone Disease Association
The new name and logo reflect the organisation’s values by putting those affected by Motor Neurone Disease (MND) in Scotland first. The logo contains a blue ‘Cornflower’ icon that is easily recognisable and was chosen as it signifies hope for the future. The Cornflower is a hardy, wild flower native to Scotland and countries where it survives in the most challenging environments. The Cornflower reflects the resilience of people affected by MND – as they face up to the challenges of life.

Celebrating the Life of Emma Berry Goodman

18th April 1991 – 7th September 2008

Emma Berry Goodman

I’d like to thank EVERYONE for all of their gestures of kindness and support.
It lifted my heart to see everyone at Emma’s service wearing bright colours as was her wish.
Many people have asked for a copy of the tributes that were read during the service so I have posted them here:

Last weekend we spent a fantastic time at Rachel House in Kinross Fife.
We had a very relaxing time, and got the chance to take some nice photos in the garden too !
You can also see the photos at the newly created CHAS Flickr Group.

Emma’s power in her arms and wrists has deteriorated severely over the last few weeks.
This we have seen coming for a little while, we have been helping her to eat for six months or so.
The biggest impact this is having is that she can no longer use the keyboard on her laptop: so her online presence on Bebo and MSN has been brought to a premature end.
She has already been assessed for alternative input tools such as an eye controlled system. This happened when she was last at Rachel House so I never got a chance to find out more.

More worryingly the muscles in her throat are starting to weaken so she has started to choke on her food occasionally.