Resources for Patient and Caregiver Assistance:

Though National Brain Tumor Society does not provide direct financial support for our community, we are honored to know and provide contact information for those great organizations who do. If you see that a resource you use/d is not listed here, please contact us to add their information to the list:

Air Charity Network
Provides transportation for treatment for those who otherwise cannot fly commercially.

Allyson Whitney Foundation – Young Adults Between 15-36
Our vision is to shine a spotlight on an under-served demographic of young adults with cancer and to place an emphasis on the need for rare cancer research. The Allyson Whitney Foundation primarily provides individuals with ‘Life Interrupted Grants’™ to ease their financial burden so that they can concentrate their energy on healing.

Hope Lodge
Some hospital systems have Hope Lodge, a place for caregivers to stay during treatment and recovery. Check to see if your hospital has a Hope Lodge. Each Hope Lodge offers cancer patients and their caregivers a free place to stay when their best hope for effective treatment may be in another city. Not having to worry about where to stay or how to pay for lodging allows guests to focus on getting better. Hope Lodge provides a nurturing, home-like environment where guests can retreat to private rooms or connect with others. Every Hope Lodge also offers a variety of resources and information about cancer and how best to fight the disease.

Inheritance of Hope
Provides family vacations for families with a parent diagnosed with a terminal illness.

National Collegiate Cancer Foundation
The National Collegiate Cancer Foundation was established to provide services and support to young adults whose lives have been impacted by cancer and who have continued with their education throughout treatment or after their treatment.

National Cancer Institute Centers of ExcellenceNCI-Designated Cancer Centers deliver cutting-edge cancer treatments to patients in communities across the United States. Find a center near you and learn about its patient services and research capabilities.

Needy Meds
NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We regularly update data on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons. We also publish information about resources for specific diseases. All our information is accessible online, at no charge and without registration.

Nicki Leach Foundation
The primary mission of the Nicki Leach Foundation, a non-profit organization, is to provide modest financial assistance to young adults (18-30) afflicted with cancer. Additionally, the foundation has an endowed scholarship fund at the University of North Florida.

Patient Access Network Foundation
To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Patient Services Incorporated
PSI helps people with specific conditions to pay their prescription copayments regardless of income. Check their website for a complete list of conditions. This list may change, depending on funding.

Patient Services Inc.
800-366-7741
Committed to supporting people with expensive chronic illnesses and conditions through locating solutions with health insurance and assisting with premiums and prescription copayments to facilitate positive health and well-being. Check website for up-to-date list of covered diagnoses and medications.

Ramps.Org
Offers a national database of organizations across the country that help build accessibility ramps for those without the means to afford. Database contains charitable programs and institutions that offer both funding and building services.

RXAssist
State by state listing of all co-pay and prescription discount programs.