Miracles Happen... and David is Proof!!!
David's story is about a Heroic little boy who has managed to inspire the world with his strength, courage, and smile. His journey can remind us all to remain faithful, hopeful, believe, and Smile!
I share our journey openly. It is real, raw, and uncut, and although I share our faith, miracles, and blessing, I also honestly share the ugly truth about what parenting a child with special needs sometimes entails.

Monday, March 23, 2009

One day at a time

Well for those of you who are wondering what we are up to me summarize our day. I woke up at 6:30 and then reviewed and compared Head scans with David’s Nero surgeon Dr. Moss. While I was in the nurses station viewing the scans David tried to make a great escape, climbing out of his bed and venturing out to hallway were a nurse found him “hanging out” (I guess he needs a little more adventure in his life lol) After speaking to Dr. Moss I rushed to an appointment with a specialist which I have been waiting over a month for. From there I went back to the hospital ordered David lunch, got dressed, and took David for an MRI. I try to avoid sedating him so for MRI”s I lay on his chest and sing to him while they put us in a very small tube with very loud noises. David being amused by sound acted as if we were on a ride at the amusement park. He giggled threw the whole process. Then I headed to Maricopa County Hospital to facilitate a Child Life Activity that I have been planning. From there it was off to school for class and now I am finally at the hospital with my Day Day =)

Sometimes I wish there are more hours in the day but today I am content with the 24 hours God has given me. I am running on 3 hours of sleep and I pray that I get a few hours of beauty sleep tonight. (Lord know I need it) One of the hardest things for me to deal with when David gets sick is that our whole world comes to a halt, but the rest of the world keeps on going, sometimes leaving us behind.

Threw the years I have learned how to jump right back in but, that can still be challenging. So for now I will focus on all the cute little random things my son does to keep my mind at ease. BTW David is still caring around his hockey puck and when the nurses ask to see what he has he hides it between his legs as if he is caring a jewel. (I am sure to him it is)