Hi.
I was wondering if you have had any help to treat your son. My 4 year old daughter was diagnosed with orbital lymphangioma last year, she had many operations on her eye which didn't make the lymphangioma better but alot worse, she had to have part of her eyelids stitched together to hold her eye in the socket, and because of the pressure on the optic nerve she has loss her sight in that eye. However a concerned friend gave me some information which led to being referred to a hospital which could help with this disease, which involves injections and NOT operations. It makes the lymphangioma decrease in size. It as just been over a year and she as had no more growth, and is looking great. If you w ould like some more information please get in touch.

Hello my name is Sara. I live in Oregon and I was wondering how your son is doing? My daughter is 4 with Lymphangioma in her left eye since about birth. It wasn't discovered until Aug of 2008 when her eye swelled so much it looked as if it were about to fall out. Since then she has had episiodes of black eyes and this swelling. It seems to happen mostly when she is ill with a cold or so. I haven't met anyone else who has this similar thing. . Doctors say they don't know enough about lymphangioma to tell me how to get the swelling to go down or preventing it. They told me surgery is an apsolute last option since it could make her lose her eye or she may bleed to death because of blood vessels behind the eye. Anyways my email is ***@****. Please write me.

The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.