The Organ Procurement and Transplantation Network held a special hearing Monday to review guidelines and make possible changes to the donor system.

These changes come after a lawsuit filed by the parents of 10-year-old Sarah Murnaghan, who suffers from cystic fibrosis - a genetic, recessive disorder that critically affects the lungs. The Murnaghans initiated a lawsuit against the Health and Human Services Department urging them to change the "Under 12 Rule."

The rule currently puts children under the age of 12 on a waiting list to receive an organ after all adults and teens receive an organ, even if the child is sicker.

"The system needs to be changed. It needs to be fair for everyone, for adults and for children. I don't want Sarah in front of anyone who's sicker. This should be the sickest person first," stated Janet Murnaghan.

On Friday, a court ruled in favor of adding Sarah and another child, Javier Acosta, to the adult donor list. But on Saturday morning, Sarah's mother posted a message on Facebook saying her daughter’s condition had worsened.

There are currently 1,700 adults and children waiting for lung transplants in America.