Information: to share or not to share? - PowerPoint PPT Presentation

Information: to share or not to share? BCS HC 2012 Conference London 2 nd May Dame Fiona Caldicott. Information: to share or not to share?. Invitation to lead a review of information governance from the Secretary of State, following a recommendation by the Future Forum

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The NHS must move towards using its IT systems to share data about individual patients and service users electronically – in the interests of high quality care”

NHS Future Forum, January 2012

‘A very strong and clear message that not sharing information has the potential to do more harm than sharing it. It is also a major annoyance for patients who feel that they should not constantly have to repeat the same information about themselves as they pass through the treatment pathway’

Data is the patient’s - need to treat their data with respect as part of respecting them

Normal presumption that all those involved in care have access with consent

An implicit deal between the service and users and a responsibility to inform on use as well as keep confidential – a key issue is that with the advent of electronic records – and a changing model of care provision – we need to renegotiate the social contract between the public and services