re: Prayers for Preston - We're on the 5th floor(almost home). Picture on pg 28 (Posted on 5/6/13 at 5:19 pm to fishfighter)

Taking Keri to get some much deserved and celebratory dinner. Whats more, we both know a good meal will be directly benefitting both boys. I'll update in the morning and hopefully by then they will have started feeds.

I know it's a bit premature and I may be day dreaming but home doesn't sound that far away now!

Thank you all for the well wishes. If we were in a place for me to buy you all a round, I would do it. For it appears the same fighting spirit Alexander had is instilled in his brother. I can't ask for anything more out of my kids.

re: Prayers for Preston - We're on the 5th floor(almost home). Picture on pg 28 (Posted on 5/7/13 at 10:03 am to CajunAngele)

Morning update - Preston had an uneventful night yet again. Nothing has changed since my last update. They will have an ENT and speech therapist come check his vocal cords today-- a common procedure after intubation. They will also remove his chest dressing after lunch. We re still moving forward and in the right direction. Just need the okay from ENT to start feeds.

re: Prayers for Preston - We're on the 5th floor(almost home). Picture on pg 28 (Posted on 5/7/13 at 10:57 am to Respublica88)

Reading all this brings tears to my eyes, and I'm usually a heartless bastard. Your strength through all of this is truly inspiring. I sincerely wish your family, and especially your son, the best of luck. You are in my thoughts and prayers.

PaedinLA-Lafayette FanProbably on a rigMember since Apr 20121685 posts

re: Prayers for Preston - We're on the 5th floor(almost home). Picture on pg 28 (Posted on 5/7/13 at 11:05 am to Respublica88)

Resp, all the updates are so fantastic! I know you have a long way to go, but you gotta be feeling great right now. Much love to you and your family, cant wait for you to load up pictures with you on the couch with the boys watching a game.

re: Prayers for Preston - We're on the 5th floor(almost home). Picture on pg 28 (Posted on 5/7/13 at 12:40 pm to CajunAngele)

Both ... They will start small increments of bottle feeding by also have an EG tube with a constant amount. Eventually they will taper down on his EG until he's consuming all by himself. He's getting all his necessary nutrition through IV now.

HLHS babies cannot and should not breast feed so that is ruled out for us.