THRIVE San Francisco event: Rare Disease, Big Impact

Rare Disease, Big Impact, with Grace Science CEO Matt Wilsey, will be held at Babson San Francisco at 135 Main Street on Thursday, March 30, 2017, 6-7 p.m. (UTC-08:00)

In 2013, Grace Wilsey was diagnosed with a rare genetic disorder called NGLY1 Deficiency. Her parents, Matt and Kristen, quickly discovered the incredible challenges they faced. At the time, Grace was one of only six known patients worldwide. Diseases that rare weren’t on the radars of big labs or pharmaceutical companies. Funding for research was virtually non-existent.

The world wasn’t set up to save Grace. Matt and Kristen did what any good parents would do — they set out to change the world. And Grace Science was born. Grace Science is dedicated to pioneering approaches to scientific exploration that are faster, less expensive and more collaborative. Their advances aren’t just bringing us closer to a cure for NGLY1 Deficiency, they are being used to discover and treat countless other diseases. In this way, Grace Science’s work doesn’t just help a few — it impacts the lives of billions.