I had a borderline b12 for a year before it went down to 105 then I was given loading doses and maintenance injections every 3 months. I've never been anemic and IF and GPC were negative.

In a recent letter from my specialist he says that I can continue on injections for now but then he implied if there is no evidence of PA then its not necessary to continue with them. Now I know medically speaking this is complete rubbish, your b12 doesn't just go down to 109 for no reason but I know from experience that that doesn't matter to them, they'll do whatever they feel like doing. It just makes me paranoid because I feel like I can't supplement myself with extra b12 and get my b12 levels high incase they do a blood test, find its "too high" and take them away from me. I swear its like you have to play a game with the NHS just to get treatment. So can they take them away? If they decide to take my injections away of there anything official I can say to stop this?

3 Replies

I live in fear of the same as I am in a similar position with negative IF and GPC and no anaemia. At the moment my GP had prescribed monthly B12 but I am now realising that is not enough. Not sure if should rock the boat by going back which risks losing it all or just sorting myself out.

2 years agoHidden

Hi Carly,

Re:"So can they take them away? If they decide to take my injections away of there anything official I can say to stop this?" Yes your GP is able to stop your B12 treatment if he she thinks that its not necessary. All you can do is ask him her to give you in writing that he she will accept full responsibility of with holding treatment you think you need.

The only way to never depend on your GP for B12 injections is to learn to self inject, self source etc. That is just the way it is I think..