Individuals Blogging For ME/CFS Awareness Every May

Be Aware: Why Awareness Matters

So you might be thinking “Why another awareness day? I’m aware it exists, what’s the big deal?” says Joey at Newly Nerfed who goes on to explain why awareness for ME/CFS is so important:

“Not only is it poorly understood and often misdiagnosed in the medical community, being something of a “trashcan diagnosis,” but that lack of understanding is far, far worse among the general public. Patients are still fighting off the terrible moniker of “yuppie flu” with which we’ve been stigmatized for decades, and in some cases they are fighting even to be recognized as ill at all …”

“Without the impetus that non-invisible illnesses gain in terms of research funding as well as patient support, ME/CFS remains a mystery. That is of course its defining trait — we patients are, all of us, medical mysteries ..”