But Ms Fairlie, 31, says legal access to the drug which could improve her daughter's quality of life is too hard.

Her seven-year-old daughter's condition is drug-resistant so there is no permanent fix says Ms Fairlie.

"She lives her life in a 24/7 fog, because her absent seizures are continuous," she says..

"She was a very able six-year-old but within the last 12 months or so she has lost her speech and we have even had to pull her out of school.

"She is only here with us as a body and not a person."

To cope with her epilepsy, Maya is currently administered a course of steroids as well as anti-epilepsy medication made up of clobazam, Ethosuximide and sodium valproate, and a recently-prescribed medication called sulthiame.

Maya's health has gotten worse over the last 12 months. (Image: Sam Fairlie)

But the side effects of these drugs has a heavy toll on Maya's day to day life.

Sam said: "It's affecting the whole family, I have another daughter who is 10 and the situation affects her as well.

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'I want my Little girl back'

The drug Ms Fairlie believes could help her child is Bedrocan, a form of medicinal cannabis.

According to the new regulation 16A ii of the 2001 regulations, medicinal cannabis, it says: "A person shall not order a cannabis-based product for medicinal use in human for administration, unless the product is for use in accordance with a prescription or direction of a specialist medical practitioner."

But Ms Fairlie has grown frustrated after not being able to be given the prescription for her daughter, which she believes would bring her seizures under control.

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"I have started to looking abroad for treatment but this would be very costly and could mean selling our home," she said.

"Why should we have to do this when it is legal to prescribe it in our own country?

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What the experts have said

Peter Reynolds is the president of Clear UK, an organisation that supports regulation for the supply and production of cannabis, and he sympathises with Ms Fairlie's situation.

"She is 100 percent right," he said.

"There are virtually no doctors in the UK who understand how cannabis works.

"But that's not the doctors' faults because they have been prevented by the law."

Peter Reynolds says people should either go private to get a prescription of medicinal cannabis, or grow their own. (Image: Peter Reynolds)

Mr Reynolds says that it's "going to be a matter of time" until UK doctors are fully up to date on the education of medicinal cannabis, but until then 'normal' people will find it difficult to get prescriptions.

"They are faced with two choices, the change to go private to see doctors who can make independent choices from the NHS guidelines, or they can continue to be a criminal."

"Realistically most people will have to go private because of ridiculous NHS guidelines and ignorant doctors."

He added for those people unable to afford private health care: "If you can't afford it, grow your own."

What the NHS have said

But the NHS is taking steps towards providing guidance for clinicians to prescribe patients with trusted cannabis based drugs.

In a letter from Chief medical professionals, they state: "NHS England asked the British Paediatric Association (BPNA) to develop clinical advice on the use of cannabis-based products for medicinal use in paediatric patients with certain forms of severe epilepsy.

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"If cannabis-based products for medicinal use are prescribed then treating clinicians should maintain a detailed assessment of clinical and patient outcome measures to support patient safety and longer term understanding of the effectiveness of cannabis-based products for medicinal use."

They also stated in the letter that that they are working with the National Institute for Health and Research (NIHR) to make sure that cannabis based drugs attracts research proposals that will "address NHS priorities and emerging clinical practice".

But until then seven year-old Maya and her family will have to continue on her current course of medication, which Ms Fairlie says is ineffective and in her words "shocking".