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Your welcome, I'm glad I could bring you some hopeful news. I was quite shocked to read about a trial on such a rare disorder. I got it in 09 and I'm in wheelchair. If you hear anything else about this trial please let me know, I think I read that Qtherapeutics was going to try to get this going in 6 months

ck, have you been retested for possible MS? New, repeated "attacks" of TM are extremely rare.

(KLD)

The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

I have been tested for so many things. Being tested for MS back in 2015, when I was diagnosed with optic neuritis. A few months later was my first large attack when I was initially paralyzed and rehabed intensely gaining a lot.

They were 95% certain I had Neuromyelitis Optica but I don't have antibodies for NMO

Kicker is, I develop butterfly rashes and skin reacts to sun/ UV and other stuff what my doctor's say are Lupus type; systemic. Which is not NMO.

My autonomic system is affected.

Now, with this last attack, my diaphragm / respiratory muscles are compromised, I lost the ability to swallow, all trunk control, my hands. My tongue and I forget which facials nerves exactly. My speech is impaired.
In addition to the deficits I already had.

I'm hopeful. I have a great team working with me. On all things adaptive.

That being said, I have had a neurogenic bladder since 2009. Cath dependent.