Discussions By Condition: I cannot get a diagnosis.

10 yrs looking for cause

Wow trying to explain this is gonna be hard but I am at a loss for a diagnosis so about 10 yrs ago I had some pain in the throat and jaws,and after several months of this my family doctor said it was muscle related,the next day I was in the ER and was about to have a heart attack,so off to the cath lab and had 3 artieries 100% blocked 2 spots in the rca and one in the circumflex 1 bare metal stent in circumflex cured that and then 2 in the rca,and about every 6-8months since I have to get 2 or more stents (both drug coated 2 kinds)changed doctors numerious times,present cardiologist has found factor v,anticardiolipen a,lupus anticouagulant,extremely high chol 800+ Triglycerides were 3500,inflammation of joints,I have been to 2 hemotologist 1 local 1 cleavland clinic,a rhuemotologist, 2 cardiologist, now total 1 bare metal stent in circumflex and 11 in the rca,taking plavix,ecotrin,coumadin,crestor,fenoglide,toporol xl,accupril,imdur,plaquenil, as of this I am 40 yrs old cholesterol still at 400 on 20mg crestor tryglycerides are 700 on fenoglide 20mg,I don't know where else to turn to look for a diagnosis or treatment as of now we are only treating the symptoms and not the cause.

8 Replies:

For some reason i am having trouble following you heres what i'm getting if you fill in the rest more people might try to help, its just hard for me to follow with all the info lumped together, i tend to miss too many things: throat and jaw painheart attack, or near heart attack??3 blocked arteries the proceures you've had done:stents in the blocked arteries?? lab findings???you kind of lost me here medications???

My point in all the information is for 10 yrs all this has happened,and my list of current meds is to kinda show the picture of whats been done so far but none of the doctors have any explanation as to the cause of what they call instent restenosis which is what 1 doctor called it,but others don't agree and some think its a blood clotting disorder,some say cause of really high levels of cholesterol and tryglycerides,but looking at the whole picture as to why everything is happening I am afraid after a autopsy in the future some doctor will say oh he has ******* to bad it wasn't diagnosed ealier.There has to be a cause or disease rare or not as to why all the clotting disorder,mild blood pressure,lipids way out of range,the swelling of joints and joint pain,and I do have hundreds of pages of labs but nothing is really out of range except for the items mentioned.

I completely agree, and yeah, some heart problems aren't diagnosed until its too late, hopefully since yours is a clotting problem that won't be the case, just keep chacking back here, often times people will post something when the person looking for answers has given up on the site, but i'll look into it now that i have a better understanding of what it could be, what speciallists have you seen?

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I have been to a local hemotologist,a hemotologist at the cleavland clinic,1 rheumatologist ,3 different cardiologist,including 1 at a major hospital in columbus ohio,several different family doctors,already had lupus,lyme and several other bloodwork test with all being normal except for clotting factor,cholesterals,if you want the results of a specific lab I have all the copies,also my hemo doc did a ct scan of lower abs,and pelvis to rule out any cancers---still pending the results on that one.