I talked to Rutz and had a very polite and controlled conversation. He really does not know all that much.

I only had 20 minutes before he had to rush off so I was not able to go into fine detail and say all that I wanted to say. I let him talk quite a bit. He also listened.

He stated that;

Scientists at the CDC are setting up a study which would include recording symptoms and taking biopsies. I told him that most biopsies only show dead skin and to see the fibers one must look at a live arm under a microscope and dissect in person . He stated that such invasive measures requires different standards of consent and permission, which I know to be true and would take longer so they are just scratching the surface for now.

He stated that the CDC can compare the fibers to the FBI database as was done in the show Medical Mysteries that I reminded him had that segment on it.. The CDC can also do a DNA analysis to find out what the fibers actually are, animal,mineral, vegetable, organic, non-organic etc.

I told him that the study group should consists of those individuals with no drug or alcohol abuse and those with no mental conditions that take medications for their condition.

I told him that most autoimmune disease have fatigue, brain fog, malaise, etc and that the criteria for investigation should be non-healing skin lesions with fibers.

I explained to him my thought on the fact that if your immune system is compromised that this "disease" will strike you and that lyme, MS, sarcoid etc is not part of the disease but conditions prior to this disease attacking and that the element for this disease may be environmental and only those with compromised immune systems catch it or show it.

I told him I had this for 5 years and that it went into remission for 10 years and that I had it for three years before it went into remission, an illness of 18 years so far.

I told him it was contagious but those with darker skin seem to not be susceptible to it and that most of us are women between 30 and 50 years of age. He argued this point and stated that the female to male ratio is even and I agreed to disagree.

I told him I believed it to be systemic, possibly stem cell related.

He stated that the scientist at the CDC are extremely interested, that the investigation will be located in Southern California and that the CDC could do an intensive invasive investigation which would take much longer but they are concerned about public health and would like to do a primary investigation with biopsies first. I told him that this type of research will find nothing.

I told him that our main concern was that the CDC was a mouthpiece for the Government and that their main goal was to disprove our "disease" and he assured me that that was not the case and that those calling him and stating that they know what this is and that they believe the government has something to do with it will get a hang up response from him.

He stated that science works from the premise of not knowing and finding out and not the other way around.( knowing and proving a point, as Mary has done by connecting it to lyme and naming it before it was discovered.). This is true and I could not argue with him about this fact.

There is no number for a doctor to call and find out about the disease until the study is completed.

He has no idea where and when and how the trials will be run, except that they will be done as all investigations are done with the SOP of the CDC in regard to yet unknown syndromes and compare reports and biopsies from individuals taken by doctors involved in the investigation.

He only knows that the people involved are honestly concerned about finding out what we have and that DNA and Fiber analysis will be one of the things that does happen. He assured me that disproving it is not the goal. The CDC is more concerned about seeing if this is of a contagious nature and if so containing and/or managing it and then deciding what is the next plan of action.

The CDC has one of the most advanced labs in the nation and if samples can be taken from live people at the lab rather than being transported we may have step one and two of our long walk towards recognition and a cure. That does not appear to be happening.

He had to go to a "meeting" and I was not able ask the rest of the questions I had which included if the CDC is working with the European CDC on this matter. I will write him and ask him that when I send my "Thank you for your time" letter.

I feel it is best to keep him on our side and for us not to alienate the CDC but keep in close contact with him and find out if the things he has stated do evolve into an actual investigation and then get repots of the investigation after completion.

He knows very little other than what he is told by the scientists working on this project, some of which are clinicians according to him. He is not a doctor but a reporter, a NEWS guy.

I am willing to watch this step by step and to keep in contact with him holding his hands to the fire about the very vague details he relayed to me. My gut is that he is sincere in his beliefs that the CDC will do their best. He may be in for a disappointment as we may be..but we have to play a wait and see game right now.

He mentioned an EPI-A , I think it is which is the standard investigative tool the CDC uses to investigate new diseases which will give it a case definition. It is not designed for us, it is a standard tool that is in place for all investigations and they are using this protocol/methodology to investigate our syndrome.

I told him of our concerns. He is limited to what the CDC is doing and how much they are telling him.

That is all they can do for now. I will keep asking for progress reports at the beginning of each month and we will then be able to tell if I have been lied to and if he is being told the truth. He seemed very sincere today. That is my gut feeling. He was a Health reporter for CNN before he started to work for the CDC.

My best bet is to call him each month and ask for a progress report. I had no time to give him my political spin about how reporting at the State level for this type of problem is useless and how are asses are bare to bioterrorism. But I have next month to tell him that when I call him for a progress report.

This was the best I could do. We left the conversation respecting one another. It is best to keep your friends close and your enemies closer. I am going by that credo.

Randy, I agree that we should keep CDC on our side. Some of the fibers that I observe under my microscope are actually are alive when I put them on the slide. In addition they can live for a couple of days. I also believe they come back to life just like some bugs. If you put a drop of water on the slide and observe the fibers over several hours, you will observe the fibers all move towards the water and you can even see some drinking the water. The fibers also join together and make a big long fiber. In addition, I think they are more active in the evening. I saw instructions for removing filarial parasites and I believe that they try to take live blood and tissue specimens in the evening.

Yes, a news guy, a spin master. I have a ton of faith in him. Tell the people what they want to hear. Yes, I think it wise to keep him close, however, it may also be wise to start initiation of our next steo. We need to unite and stay one step ahead.

Thank you for the information and for asking those questions. You must feel a sense of relief to have at least gotten to hear him saying it is under investigation.

after barz post i turned to the new "holiday"..... .
in hope of finding a biological contaminant during construction .... like nanobots in the concrete mix or somthing ... nothing ..
but the dust fragments seemed?.... i researched the architect...
nothing really new but i found this quite interesting

"Minoru Yamasaki, was a favorite designer of the Binladin family's patrons—the Saudi royal family—and a leading practitioner of an architectural style that merged modernism with Islamic influences. aware of Yamasaki's Saudi Arabian projects. Indeed, his family may have built them. (Minoru Yamasaki Associates won't say, but the Binladens were involved with almost all royal construction.) "
"using advanced techniques we're finding out what's in these samples - we're finding iron, sulphur, potassium and manganese - these are characteristic of a variation of thermite which is used to cut through steel very rapidly, it's called thermate."

"thermite was a "clever" choice because its ingredients, aluminum and iron oxide do not require identifying tags by law, meaning they couldn't be traced back to their manufacturers."
-nadas

Do you not study bugs? Endomology?Bugs carry things nowdays, fungus, algae spores,diseases etc. Have you never heard of the genetically altered bugs? moths? etc...?

Here is what I replied, keep up if you have anything to say about this disease. We are serious here, this is not a game for us. Our lives have beens smashed, and we suffer daily, we find ways to survive each stage of this SOB. So, stop the pride game here, because we do not operate on pride, we operate on unity in getting to the bottom of this FIBER DISEASE, which could be our own fibers leaving their places of residence to escape the human body through the skin, for all we know.

Here is your answer to what you think I do not have time for such BS you dish out. What is your problem? Are you helping or hindering us?

Sarah Bione,

Why so defensive? What did you do with the DNA sample from my specimens I sent you? You sent me back Pesticide information. Why are you going from endomology to psychology? Will we in the future have an endopsychodermatology discipline? I certainly look forward to that.

Oh, by the way bugs do carry fungus, expecially the PHORID FLY. Brevaria bassiana. So, it might open your eyes if you took a look at fungus, and I do believe they carry WOLBACHIA also. Most likely algal spores. Do you not look at what bacterias the bugs carry and the worms associated with those bacterias, all carried by the sandfly, tstse fly, PHORID FLY, wasps, sad thing about the honey bees though. And.....Thelohania is making a mess of crabs, too.

Sarah, some of us are University educated, but, some of this is common sense. Where do you stand?

Maybe you need to study the pscyhological reasons why bugs bite people and give them diseases.

Ms. Skytroll

Ms. Skytroll,

To the contrary, you did not read all of the threads yourself. I replied to your post. You can go back to page 311, but I will copy it here for you:

<blockquote>
Skytroll,

Please delineate to me in what ways my words are defensive.

I feel your complaints are baseless. You complain that there was no DNA test of your sample, not fungus inspection of your sample. When we spoke or when you sent the sample, you were informed that your sample would be inspected for insects-- not fungus, not DNA, not a partridge in a pear tree (though I imagine if a bird WAS in your sample, you would know Smile ). Please explain to me the reasons for your complaint, when you knew what you were sending would be inspected for, and I can address them.

I'm taking my bachelor's of science with focus in psychology to continue studies in psychology. That's my personal preference of career aspirations, which I really feel is neither here nor there. Would you please explain to me why my graduate work is significant to my previous job?

No, I did not look at fungus or bacteria or algae. That wasn't my job. I got paid for a specific job, and that is what I did, in the interest of keeping it. But it seems to me you think you have this all figured out. If your condition is a fungus/bacteria/alga caused from a phorid fly, then it should be quite simple to have a researcher in one of those areas confirm that for you, and you should be better in no time. What steps have you taken to pursue this?

Sincerely, Sarah Bione-Dunn</blockquote>

Also, Ms. Skytroll, I understand typos and make them myself, but twice you have written "endomology" when you mean "entomology" and through I'm 98% sure this is just a typo, in case it isn't, I hope that helps.

OREGANO OIL was widely used prior to advent of antibiotics and is natural anticeptic and most powerful natural antifungal. Since you are talking about natural treatments, I have been trying to share mine, which is resulting in seeing many organisms/fibers/worms in body fluids and on skin from tiny lesions. My infection seems to be more systemic and not limited to cutaneous manifestations.

Recently, when I have itching/burning anywhere (face, arms, legs, toes. under eye, ear, nose), and especially after shower, I have been applying a couple drops of P73 WILD OREGANO OIL oregano oil tincture, and:

Often it drives out a _at_ 4-6 cm white worm! Looks like whispy hair, often narrow on on one end. Barely visible on skin but felt within several minutes (like moving hair or feather). Often preceded by an observable cutaneous larval migrans (CLM) and burning sensation. Just swat with piece of SCOTCH TAPE and look under a light and/or with magnification.

Recently have been noticing numbness/tingling in toes. Last night I was awakened by burning pressure CLM sensation in middle toes, rubbed oregano oil on them feeling small lump. Within minutes what was expressed were about a dozen blue fiber balls. Eventually relieves itch.

I hope someone else would try this oregano oilto see if they also drive out some organism which is observable and available for comparison.

I love this site and have learned a lot. Much has reinforced my observations and self-study.