Support

Site Footer

Sliding Sidebar

Instagram

1 week agoby p0sitivityI was interviewed and filmed yesterday for an upcoming project that the International FOP Association (IFOPA) is putting together! It brought back all the memories of being filmed for CNN last year ❤️ so grateful to be able to share my story and help raise awareness of FOP! #fibrodysplasiaossificansprogressiva :…

2 weeks agoby p0sitivityToday is the first annual FOP Awareness Day in Connecticut! my mom shared our story during the church service and I was able to answer a few questions afterwards. So thankful for the wonderful people I was able to share this day with - the next couple of weeks as…

3 weeks agoby p0sitivityHappy 21st birthday to my best friend!!! I'm beyond proud of you and so thankful to know you. I love our friendship and all of the crazy adventures we've shared so far. Our memories are truly some of my very favorites. Whether we're wandering the streets of Portland, ME during…

1 month agoby p0sitivityCabin circle - the true magic of Camp. I have so many childhood memories of walking up this path hand in hand with my new friends and counselors I adored. We'd chant the cabin cheers we memorized, determined to be the loudest so we could be the first ones into…

2 months agoby p0sitivityMy baby Prancer turns 14 today!! I've been feeling especially sentimental and emotional lately thinking back to his adoption day in 2003. I was only 10 when we got him & I'm now 24. He's been with me in every Connecticut town we've lived in. He was my greatest comfort…