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Tuesday, May 28, 2013

Sarah needs YOUR help!

"I'm not going for easy, I'm just going for possible"

- Janet Murnaghan. (Sarah's mother)

This beautiful, brave little girl is Sarah Murnaghan. Diagnosed with Cystic Fibrosis at one year old, Sarah, now at only 10 years old, is dying. She is in desperate need of a double lung transplant or she will die within weeks. Sarah has been listed for over 18 months, as pediatric lungs are very few and far between. The only thing standing in her way is a UNOS rule (United Network for Organ Sharing). This rule states that while Sarah can be listed for adult lungs she may only receive them if all other adults/adolescents (over the age of 12) in the area turn them down, regardless of how sick they are.

Sarah's parents and supporters are fighting to have that rule changed. They are not looking to take lungs from people who are sicker than Sarah, they just want to give Sarah, and other children, a fair shot at survival. If Sarah were just 2 years older, she would, most likely, have gotten her life saving transplant by now.

1 comment:

This is sad! If the child is eligible for a set of adult lungs due to her age, then she should be able to receive them just the same as an adult, first off. I say move this child up the list and get her a set of lungs. No child should be left to left to die when such an easy answer is staring you right in the face.

Also, who's the idiot who wrote the current law anyway. Probably someone with an adult family member needing lungs and they wrote the law to help their own family or friend or financial donor.

Blogger

I'm Kate, but my friends call me Ducky. I'm 26yrs old.
I'm have a huge heart.
I cry when I'm happy. And when I'm sad. I'm very sarcastic. I live online.
I hate the idea of smoking!
I'm a twin. (My sister died at 13months from Muscular Dystrophy)
I was employed as a PCT at a hospital. but had to leave for medical reasons.
I'm a huge supporter of organ donation.
I have been working with the Cystic Fibrosis Foundation since I was 16,(2005)(A friend with CF died on my 16th birthday). I'm addicted to charity work.
---For more info, check out my about me.

Bush's Team Breathe (GreatStrides Page)

you all know my life's dream is to see the day when Cystic Fibrosis is cured!!
so make with the donations pleaseeeeeeeee ♥
and together we can make "CF" stand for "Cure Found"
http://www.cff.org/Great_Strides/KatelynBush