We are a non-profit organization created to raise awareness, support research, and understand the rare genetic disorder: Ehlers-Danlos Syndrome (EDS).

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EDS

(ehlers-danlos syndrome)

Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. Defects in connective tissues cause the signs and symptoms of Ehlers-Danlos syndrome, which vary from mildly loose joints to life-threatening complications.

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Million People Worldwide Have EDS

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Minutes between births with EDS

James Kayler’s journey continues through us and the war to find a cure for EDS

James fought a long, courageous journey and a beyond brave battle with Ehlers-Danlos Syndrome (EDS). James was the type of person that could not only light up a room, but he also had the ability to capture the genuine good side in every single person he met. Within minutes he would have everyone laughing and sinking into his wholesome charm. To say James was unique does not do justice; he was truly one of a kind. He always looked out for others instead of himself. Even during his darkest days with vascular EDS, James always maintained a positive outlook on life. His journey continues through us and the war we fight to find a cure for EDS.

LATEST NEWS

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EDS, also known as Ehlers-Danlos syndrome, is a rare disorder that affects connective tissues. There is a variety of classifications for EDS, and although cases of patients with EDS are beginning to become more heard of recently, it is still…