I started prolotherapy treatments in 2011. I have lost count as to how many I’ve had. I have learned along the way that prolotherapy is controversial in the world of EDS. The first EDS doctor I saw after I was diagnosed actually did not recommend it, although he admitted he did not know much about it. At that time, I was having a horrible time keeping my back and head supported without a neck or back brace. That doctor actually diagnosed me with cranial instability and sent me on my way with a referral to a spine surgeon, telling me he suspected the surgeon would determine that I needed a skull to C-3 fusion.

Hi friends! Invisible Illness Week is fast approaching (September 9-15). I was asked to fill this out, and just before I was about to respond with, “I already did it two years ago,” I thought about it and realized a lot has changed in two years. Therefore, some of my answers are different and some have remained the same. I wanted to post it early, before school starts, since I am unsure how my body will respond or adjust to being back to work again. So here you go. My 30 things.

I got your letter last week. I think I smiled and cried at the same time when I read you were leaving your practice in South Bend and moving to a different practice in York, PA. I immediately felt so happy for you but sad for us Michiana EDS’rs. You have been there from the beginning, ever since I discovered I belong in this special club we like to call “zebras.”

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.

Zebra Food

Hi there! Sorry for the delayed response! For me, I did not notice much of a difference either way. However, the one thing it did for me was make things more predictable (when I felt better, when I flared up (right before period)), etc. This made birth control worth it in my opinion.