Our family have created the Foundation and this event to raise funds to address childhood diseases that can benefit from Gene Therapy.

Our launch event on May 19th, 2018 will kick off our mission by raising money to continue to fund Research and Gene Therapy clinical trial development for Juvenile Batten Disease - a disease our son was tragically diagnosed with in October 2016.

It's a serious cause but it's going to be a fun night cause that's what it takes to raise money in these circumstances!

"Self promotion goes against every fiber of our beings but this is a far more important cause than my modesty so here it goes…" Sean Hills, SpringCM

After hearing Shawn Stilwell tell the extremely tragic and moving story of his son Harry last week at SpringFever, it got me thinking about out of the box ideas to help Harry and others afflicted by this terrible rare Juvenile Batten Disease. The shear amount of money that needs to be raised is staggering ($2.5 million just to get the process to the planning stage for human trials, all of it the burden of the families because pharma will not fund the research).

My band 60 Cycle Hum is playing a gig at Cubby Bear on Friday, May 4th and this seemed like a great opportunity to raise some money. So I approached my band mates about turning this into a fundraiser for NewGenes.org and there wasn’t a moment of hesitation. They were all in. So if you are free the evening of Friday, May 4th then please come out and support Harry and the NewGenes.org organization. There are three bands playing a diverse set of music (we are a rock band, the second band is pretty eclectic indie music and the third band is a local rap artist backed buy an actual band). If you are coming out then please purchase tickets ahead of time. We get 80% of the pre-sales but the door is split three ways so to maximize what we can contribute to NewGenes.org you MUST BUY a pre-sale ticket using the link below. It will be a fun night for a great cause at an amazing venue across from historic Wrigley Field! My band goes on stage around 8:15pm.