Hope and help for triple-negative (TNBC) and other forms of hormone-negative breast cancer.

Saturday, October 11, 2014

Hope and TNBC: Now in Paperback

Remember when your doctor
told you that you had breast cancer?

Oh, yes, you sigh.

And remember when your doctor
told you it was an especially aggressive form called triple-negative, or
estrogen negative?

Oh, yes, you shudder.

I suspect your reaction was
like mine—confusion and terror.

Well, I was there eight years
ago and now, look what I have done. I survived. Eight years!I have seen the birth of two grandsons since
then, started painting again, traveled all over the darn place, and just
generally get up every day like a regular person.

And the thing is, I am not
unusual.The majority of women with non-metastatic triple-negative survive and go on to live long, full, meaningful lives.

Notice the emphasis on
hope.That’s because I know so many women
are terrified at this diagnosis—they think they cannot survive.And I understand that completely.

When I was diagnosed, I went
online—of course, isn’t that what we all do?And what I found there terrified me—so many stories about this being an
especially lethal form of cancer, about how aggressive it is, how the odds are
against you.

The reality is far less
scary.Far, far less. It is true that
the survival rates for the more common form of breast cancer—hormone-positive
cancer—are better than they are for triple-negative breast cancer. And it is true that metastatic TNBC can be touch to beat. But, still, I repeat, the majority of women with
TNBC survive. That has become my mantra.
Repeat after me: The great majority of
women with TNBC survive.

In studies, as many as 90
percent of those with early stage TNBC survived.That’s a great statistic.Survival rates go down with higher stages,
but even through stage 3, studies show that TNBC is highly survivable.

So, through my book and my
blog, I am trying to counter the gloomy prognosis that is often automatically
connected with this disease by doctors, journalists, and researchers. This is not a disease to take lightly—but in
the great majority of cases, it responds to treatment.

I repeat, The great majority of women with TNBC
survive.

Here are some of the things I
talk about in my book:

• I tell my
story—briefly.And I tell the stories of
11 other marvelous women who had estrogen negative or triple-negative and
survived quite beautifully.One was
breast-feeding her son when she was diagnosed.That son is now past 30.Two had
babies after treatment, one got married in her 50s, one is competing in
triathlons.One had two bouts of TNBC
and has survived the second for ten years.

Wonderful women.Wonderful stories.

• But the core of the book is
in research—triple-negative breast cancer is now the subject of some important studies
worldwide, and I share the results of that research.

• I explain the disease and
what we know about risk factors.I show
you how to read your pathology report.And I expand on treatment options.Triple-negative responds well to chemotherapy, so most women have some
form of surgery, chemo, and radiation. Metastatic, or stage 4 TNBC, is hard to fight,
as are all stage 4 cancers, but it is the focus of most of the current
research, so I am hopeful we find a treatment soon.

• And I talk about things we
can control ourselves—diet and exercise.And give some tips on how to maintain a healthy approach to both.Plus, I offer the triple-negative breast
cancer diet—a blueprint for healthy eating.

I approach the reader as a
real person—I understand that she needs information and encouragement and
perspective and, sometimes, a reason to laugh.

I am a journalist and a
college professor, so I applied the skills I learned as a teacher, writer, and
researcher to this book.Most important,
I survived.And you can do.

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Surviving Triple-Negative Breast Cancer: Hope, Treatment, Recovery

Finally! A book about TNBC written by a woman who's been through it—Patricia Prijatel, founder and editor of this blog. If you like this blog, you'll love this book.

Patricia Prijatel

Founder of Positives About Negative and author of Surviving Triple Negative Breast Cancer

Top Cancer Blog

From Symphony Sisterhood

Welcome

When I was diagnosed with hormone-receptor-negative breast cancer, I required a positive attitude of myself—I was not going to let a disease have the upper hand. I hope I can share some at that attitude with you while I offer what I have learned in my trek through this disease as a patient and medical writer.

It's a given that life ends in death. Cancer just makes you face that inevitability more directly than you might have before. To me, that means living fully right now.

Three Mountain Dogs, a children's book by Patricia Prijatel

Triple-negative breast cancer (TNBC) lacks hormone receptors for estrogen, progesterone, and Her2/neu. It affects about 20 percent of all those with breast cancer. This blog offers information and hope for those with TNBC and other forms of hormone-negative breast cancer.

Calm Spirit Note Cards

Blank greeting cards with the Calm Spirit image are available in packets of 6. They're ideal for sending a personal message of encouragement to anyone living with cancer. Boxes of six are available for $10.00 and can be ordered by contacting my friend Madlyn at madlyn.ferraro@ gmail com. Individual cards are $2.50 each.