"You know this is the way it is. You were born, and so are subject to change, disease, and ultimately death. It happens differently for each person. This is one of the ways it's happening to you." - Toni Bernhard

"Our life is always all right. There's nothing wrong with it. Even if we have horrendous problems, it's just our life." - Charlotte Joko Beck

27 November 2012

Day 27: Somewhere

If I could go anywhere, then I would go somewhere. It doesn't have to be Machu Picchu or the Taj Mahal or Aluru. I would go to the seaside, that's half a mile from here. I would go to the cinema to watch a movie with my husband. I would go for a nature walk. It wouldn't have to be a long walk. Maybe just a half hour. I would go to the train station and buy a ticket to London for a day trip. I would go to the shop on the corner and buy milk when we've run out.

I spend my life in bed, and the closest I get to seeing the world is from the windows of the taxi as I go to doctor appointments. My wheelchair doesn't let me in to many places, and even when it does, it is so uncomfortable, and sitting up makes me so tired. Sometimes, I just ache to see the world. I'll sit at the bedroom window and look out at the street and the flats nearby. There isn't much of a view. Sometimes there's a cat in one of the windows, or someone walks by with their dog. For all that, it's a far better view than I used to have out my window, in the old basement flat.

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About Me

I'm a woman living by the sea in England with my husband. I'm housebound and 80% bedbound with ME/CFS. I was also just diagnosed with Fibromyalgia. I'm a bit of a wreck physically, but it's alright. It's just my life.