‘The other option is waiting for this equipment to come to the UK but nobody knows when that will be.’

Curiously, the only time Nathan does not suffer from the seizures is when he has caught a cold.

James added: ‘In the worst case, Nathan’s condition will kill him.

Nathan Box has the ‘most beautiful smile’ moments before he has a seizure (Picture: East News)

‘There have been deaths in America where children have fallen and hit their hits and it’s caused bleeds on the brain.

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‘It is frustrating for us as we know this would cure our boy and give him his life back like all youngsters should have – kicking the football about with his friends and enjoying his childhood.’

A spokesman for Great Ormond Street Hospital said: ‘Hypothalamic Hamartoma is a very rare, complex neurological condition, and the expert team here at GOSH is working closely with Nathan and his family to provide on-going specialist care.’