Tuesday, January 27, 2015

Perpetually late

Being late is one of my biggest pet peeves. And yet, I don't think I ever manage to be on time for anything except flights and doctors appointments. I'm so frequently late that I'm overly worried about missing a flight or an appointment so I'm always terribly early and stuck dealing with annoyed kids as a result.

All this is a lead up to say that I'm late, again. I missed the five year anniversary of Miss Sunshine's cleft repair. It seems so crazy to me that it has already been five years - but it has. Miss Sunshine is doing remarkably well these days. We have a few minor speech issues, that may be cleft related, but are more likely age typical mispronunciations and errors. S's are still a bit unclear, and R's still come out as W's more often than not, but overall she has no need for speech therapy. I have to schedule a follow up hearing test for her after our Shriner's visit, where she tested significant loss in her right ear. They said it could be due to the plane ride, though, so we are crossing our fingers that is the case. She is still toe walking 95% of the time, and even though we try to get her to do stretches and walk heels to the floor, she is losing flexibility almost daily it seems like. We do meet with the orthopedics team at Shriner's at our next cleft team visit (I can't sing the praises of this organization enough, seriously. The things they have done for our family alone, much less the thousands of others they help daily...), and I'm anxious to see what they have to say. I'm praying it's something that will be correctable with therapy or braces or something along those lines, and not require surgery. Only time will tell, I suppose.

Waiting in the airport before our last Shriner's trip

We went to the eye doctor this week. Miss Sunshine has perfect vision. Monster Boy really, REALLY tried to fail his vision test because he wants glasses! He did come up slightly far sighted, so he now has reading glasses. He is beyond excited about them and really tries to find any excuse to wear them as much as possible. It's rather amusing. He looks absolutely adorable in them, though.

So handsome in his new glasses - that he picked out all on his own

I finally graduated! I have taken the NCLEX (my licensing exam), and passed. I am officially an RN! I have a license number, and a JOB. I am so excited about the job! I have officially accepted a position in the labor and delivery/postpartum unit at one of our local hospitals. It is a very exciting opportunity and I am thrilled - it's my dream job and I couldn't be more excited to start. I feel very hopeful that the past six years of struggles and worries are moving behind us, and the future is looking very bright for us all. I am hoping that now that school is done, I may find more time to update and bring more cleft awareness here. I make no promises on that front, mind you. But I can dream!

About this blog

About Me

Hi, I'm Mommy Mac. I'm a part-time-working, full-time-studenting, mostly stay-at-home mom. I have one amazingly supportive, loving, wonderful husband, and I have two beautiful children: Monster Boy, my almost ten year old too-smart-for-his-own-good genius, and Little Miss Sunshine, my five year old diva/princess-in-training. Miss Sunshine was born with an isolated cleft of the soft palate, which was diagnosed at birth, and pretty much rocked our world. This blog is my place to get down to the heart - or, in our case, the cleft - of the matter...

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The Kiddos

Say hello to Monster Boy and Little Miss Sunshine! Of course, they are a lot bigger now - but really, this photo is just too cute not to use...

Monster Boy

Monster Boy is eight going on sixteen (at least in his eyes!). He's a bit of a know-it-all with a very Type A personality - which can sometimes make for interesting conversation, especially with two OTHER Type A personalities in the house. He is smart, out-going, loving, kind, and a joy in general - well, minus the attitude he's so good at copping. But we wouldn't have him any other way!

Miss Sunshine

Little Miss Sunshine is my FIVE year old terror. She has personality in spades these days, and doesn't slow down for a second! She is our joy, and we spend each day with her living life to the fullest. With all of the ups and downs that we have been through with the discovery of her cleft and subsequent treatment, we are looking forward to our next phase - life after palate repair.