More Resources for People with ALS

The toll that ALS takes on a family is devastating – and can strain a family emotionally, physically and financially. The ALS Association helps ease the physical, emotional and financial burdens that often accompany an ALS diagnosis by providing free programs and services to help people with ALS and their loved ones manage this journey. We also have an extensive referral network and can help identify additional support within the community.

The following organizations may be able to provide additional resources to families in need of assistance and guidance:

App2Speak
Easy to use speech and communication application for the iPad. Offers a 30 day trial.

Family Hire
Family Hire provides a safe and efficient way for families to interview, choose and employ caregivers directly for their loved one. This innovative approach to in-home care empowers families to make the choices that best fit their needs, preferences and budget.

Team Gleason
Helps individuals with neuromuscular diseases or injuries receive leading edge technology and equipment.

The Message Bank
A joint project between Boston Children’s Hospital and Tobii Dynavox with a goal of providing a free and open message bank resource for people at risk of losing their voice.

Ramp Up
The UCP Ramp Up Foundation provides grants to low income individuals with disabilities living in a single family home in the state of Illinois. Income limits apply. Funds are used to build ramps, lifts accessible bathrooms and kitchens, door widening, elevators, stair

United Special Sportsman Alliance
An all-volunteer 501(c)(3) non-profit wish granting charity that specializes in sending critically ill and disabled youth and disabled veterans on a free outdoor adventure of their dreams.

United Way 211
A nationwide information and referral line, offering access to over 40,000 resources.

Voice Banking
A free online tool to help people through every step of the message banking process to record their voice, which can then be transferred to speech generating devices or to a text to speech app that plays audio files.