Excellant, lupylisa!! There is NO cure, and very little that really helps, as we all KNOW deep inside. It is very hard to remember sometimes, when sometimes it seems that the meds are maybe worse than the disease, but they are REALLY NOT.....be strong and dont give up ur hard earned cash$$ for something that could INDEED MAKE YOU WORSE!! NONE of us needs to be WORSE!!!

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Report This| Share this:What to do when someone tries to sell you a "cure" for lupusExcellant, lupylisa!! There is NO cure, and very little that really helps, as we all KNOW deep inside. It is very hard to remember sometimes, when sometimes it seems that the meds are maybe worse than the disease, but they are REALLY NOT.....be strong and dont give up ur hard earned cash$$ for something that could INDEED MAKE YOU WORSE!! NONE of us needs to be WORSE!!!

I have had many good-hearted people tell me or give me immune booster vitamins and things. So sweet they just want to help, they just don't understand this disease. That is one reason we need more public awareness. I even have a niece of my boyfriend, that was diagnosed with Lupus at age 10, and the parents don't believe in prescriptions and are giving her immune boosters. We argued about it for a long time, and I send them information. I am afraid for the little girl.

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Report This| Share this:What to do when someone tries to sell you a "cure" for lupusI have had many good-hearted people tell me or give me immune booster vitamins and things. So sweet they just want to help, they just don't understand this disease. That is one reason we need more public awareness. I even have a niece of my boyfriend, that was diagnosed with Lupus at age 10, and the parents don't believe in prescriptions and are giving her immune boosters. We argued about it for a long time, and I send them information. I am afraid for the little girl.

Hi Squirmy, I was diagnoised with Lupus 3 years ago and was having so much pain in all my joints. My Dr. wanted to start me on steroids right away. I refused as I was afraid of the side effects that some die from. I go every 6 months and my numbers are coming down everytime. I have no pain in my joints and all I do is immune booster vitamins and watch my diet and keep a good attitude. I know not everyone is the same but I hate to see where someone is taking all those steroids and still in pain.

Thanks for your Reply!

Report This| Share this:What to do when someone tries to sell you a "cure" for lupusHi Squirmy, I was diagnoised with Lupus 3 years ago and was having so much pain in all my joints. My Dr. wanted to start me on steroids right away. I refused as I was afraid of the side effects that some die from. I go every 6 months and my numbers are coming down everytime. I have no pain in my joints and all I do is immune booster vitamins and watch my diet and keep a good attitude. I know not everyone is the same but I hate to see where someone is taking all those steroids and still in pain.

I am glad you are able to control your lupus with diet. But, immune boosting vitamins are normally a big no no with lupus. We need to stay away from anything that boosts the immune system. When they treat lupus, they try to supress the immune system so taking immune boosters is counter productive.

I went for years refusing to take steroids but when my lupus attacked my kidneys, I had no choice but to take them. The side effects of steroids are terrible. I have already had cataract surgery and am osteopenic (pre osteoporisis) but I don't know that I have ever heard of anyone dying from taking steroids.

But if whatever you are doing works for you, more power to yaou! Just as a rule immune boosters are not the way to go for lupus patients

I am glad you are able to control your lupus with diet. But, immune boosting vitamins are normally a big no no with lupus. We need to stay away from anything that boosts the immune system. When they treat lupus, they try to supress the immune system so taking immune boosters is counter productive.

I went for years refusing to take steroids but when my lupus attacked my kidneys, I had no choice but to take them. The side effects of steroids are terrible. I have already had cataract surgery and am osteopenic (pre osteoporisis) but I don't know that I have ever heard of anyone dying from taking steroids.

But if whatever you are doing works for you, more power to yaou! Just as a rule immune boosters are not the way to go for lupus patients

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