Monday, March 19, 2012

Return to Hansa- Survey Says...

I think I say this a lot but- What a day! This brings back memories of my first trip to Hansa. Information overload. I was ready this time and took notes but I am still not sure I comprehend everything. Of course as I start to process things questions come up so I will be making my list of questions for the doctor here shortly. I wish I could take the "essence" of Hansa with me always. It is almost like magic that you walk through the doors and you swear you will eat right, take all of your remedies everyday on time, drink plenty of water, detox, meditate, think positive, etc...but then reality sets in when you leave and it starts you start to let those things go by the wayside. Once again, I am going to try really hard to to do what needs to be done to give us the best chances of health. Maybe it will stick this time because it has become about my kids much more than about me. So onto the day and what we learned. Sorry if my posts here are long but I so desire to give you as much information as possible. If anything I say here is helpful to one person than it really does make it worth it. Grab a cup of organic coffee, with stevia and a splash of almond milk and settle in for a read.

This morning started out with a CRT for myself and my 8 yr old daughter Jenna. My daughter did great during the test just like I knew she would. Next we went in to see the doctor and go over the results of the CRT's and then have the BRS(bio resonance scanning) for us and my 5 yr old daughter Brooke. Starting with me made the most sense. We reviewed how I had been feeling, what I was currently taking, etc...I admitted I screwed up and stopped taking my remedies a few weeks too early by mistake. I could tell than he wasn't thrilled but we were going to get through it. It may have been a blessing because my body actually tested that it didn't want to of the remedies anymore so that was good. Anyways, my CRT test didn't show a huge improvement but it is obvious by how I feel that things are improving. A lot of what I am dealing with may take 6 months to a year to clear up so that would make sense. In the overall numbers my inflammation dropped from a 4.5 to a 3. (0 is best 6 is worst) I will take any improvements I can get. Then when it came to vitality it went from 1.3 to 1.7. My body was functioning at about 40% at the 1.3 mark so again some improvement. When it came to specific areas there was not much change either. My thyroid is actually worse so I need to have it checked and may need to go back on thyroid medication that I had stopped in January. Hope to know a little more by Wednesday but will still need to have it checked. The biggest deal on my test was the fact that my head issues had not improved. This really confirms for the doctor that I am dealing with CCSVI. (chronic cerebrospinal venous insufficiency) Basically it is believed to be comprimised blood flow in the veins draining the central nervous system. The fact that I am having some lymphatic drainage issues in the areas at the base of the neck further supports the doctors suspicions. This is something they are finding in MS patients. Interestingly enough a lot of MS patients are testing positive for Lyme. (So if I could for one minute just say I don't blame Lyme for everything but the reality is many conditions appear to be caused by Lyme. Many of the conditions of really just a name for a group of symptoms like Fibromyalgia where as some of the other conditions may be actually illnessed or diseases them selves. I just encourage you to do your own research is you are facing a symptoms or have been labeled with a condition that may not make sense or has no known cause. Lyme has been associated with things like...Fibro, chronic fatigue, MS, alzheimers, parkinsons, arthritis, autisim, bi-polar just to name a few. Everything has a cause. Just saying. Enough of the lecture)

So what does CCSVI mean for me. One is the doctor believes this may be a big road block for me if it is not addressed and that would be sooner rather than later. Second I need to go get a MRI and Ultrasound to determine if this is definitely an issue for me. Being that this is a fairly new condition I am limited on the places that are familiar with it. The place that the Hansa Center works with regularly to address this issue is in Las Vegas. The imaging alone is about $3200 if your insurance won't cover it. Which I am guessing they won't but we will see. If the images show blockages you basically have to have something like angioplasty to open things up. That brings up a whole other world of issues...it is not guarenteed to fix things. You may not feel better even if it does fix things. You may "re-stenous" which means things block back up and then what. Factor in the risk and the cost of the procedure and well, this is going to be a big thing for us to deal with. Bottom line, I feel right now I need to try and proceed with the imaging and then go from there. In some cases it is genetic and something is malformed causing the issues. (Doc said this may be an issue in my case since Jennas test is leaning that way but they don't usually go down this road with kids. It could be other factors at this point for her) It could also be caused by some type of cervical impingement and fixed with some chiropractic type therapy. Either way surgery or other would involve me coming back to Hansa to continue addressing the issues and seeing what happens when that issue is taken care of. For some people, it is a huge turning point and they really improve after this. So bottom line is we have lots to think about. That covers the basics of me today. As far as the rest of my testing went with the BRS- my Lyme is definitely improving. I still have the ammonia in the brain(which is the main toxin released by the Lyme bacteria) but there was definite improvements. Started some new remedies to deal with the neurotoxin issues, the viruses which are major for me, and iodine for the ammonia I believe. Anyways I am excited to get back up and going and see some more improvements.

Now to what really matters- my girls. Brooke did really good with the doctor. In summary she has major digestive issues which I kind of figured. If you remember the top 10 list from last time Brooke only had a top six issues from each area. Children and healthy adults don't usually have 10 areas. For people with significant problems we have more than 10 but that is where they stop testing. Have to start somewhere. At least there is an end point for Brooke. From biggest issue to least her organs were- colon-stomach-thyroid-pituitary-pineal-hypothalamus and chemical/nutritional issues were metabolic-virus-lipid metabolism-yeast-allergies-hormones. Can't say all that means yet but should know more over the next two days. The hormone issue stuck out to the doctor and this is where the diet has got to change. Her hormone issues are stemming from the crap in our diets. So completely organic and hormone free meat and dairy or going dairy free is a must. What a wake up call. Dr. J believes Brooke has yeast in her colon so going to deal with that and forward we go. He also believes she may have some neurotransmitter issues contributing to her mood swings. She is also indicating stress on her autonomic nervous system. I believe it could be internal (illness type stressors) but it can definitely be external stress. Another huge wake up call. My 5 yr old and 8 yr old both are suffering from stress related issues. If these aren't indicators of how out of whack our world has gotten I don't know what is. The good news is although the doctor believes Brooke is carrying the Lyme bacteria she got in the womb she has no indications it has activated in her system. Lets hope with what we are doing here and the changes we make going forward her little can keep it in check and she never has problems. She does have some cranial fixations which may be affecting sinuses and some pelvic misalignments both of which we will deal with in the next two days.

My Jenna also has the cranial fixations which may be causing her more recent episodes of dizziness and pelvic misalignments. She has the indicators for stress on her autonomic nervous system too. She was indicating for a remedy that would help people who had gotten sick and not recovered properly. That is some big news for us. Jenna was born 9 lbs 4 oz to everyones surprise. By about 7 or 8 months old she was 18 lbs. She then got violently sick with rotavirus which caused her to end up in the hospital dehydrated and to have lost almost 4 lbs in a week. She has had ongoing stomach trouble and at almost 9 yrs old she weighs only 53 lbs. I am hoping we really begin to make some improvements in this area. Her top list of issues was as follows for organs adrenals-stomach-colon-heart-pituitary-pineal-hypothalamus-bladder. and chemical/nutritional were toxicity-bacteria-virus-hormones-allergy. She too has an end in site. The heart does concern me and they did pick up an arrhythmia which her pediatrician has also picked up but the Dr. J says he believes it may only come on in response to what her body is going through at any given time. The biggest news of the day was that Jenna is showing active Lyme as she has substantial quantities of ammonia in her brain as well. The bugs have started their cycle and are dying off releasing toxins into her little body. I almost cried when I heard the news but not because of what you would have thought. I am so thankful to God that we found out. My little girl stands a good chance to deal with this now and be done. No invasive antibiotics but getting her body to get back on top before it looses all control. I see myself in her at this age struggling with staying focused, being organized, remembering my homework. Those same struggles in me were joke about lovingly in my nick name "Jessica Marie, tie your shoes, forgetful, Dlugos. I was a little bit of a walking disaster who always forgot things and well no one knew it wasn't just part of me. My body was being taken over slowly by these stupid bugs and their toxic waste and I was left fighting to get my life back. My little girl won't have to suffer the way I did. I couldn't feel more blessed. I am a little in shock and realize we may have some work ahead of us but we will overcome this. Dr. J believes her number one issue of toxicity is probably the ammonia and her body actually said it wanted the organs dealt with first. He does believe she may somewhat of a leaky gut and her allergies are really systemic reactions to what is leaking out. I can't wait for tomorrow so we can really get moving on these issues and hopefully start to see some improvements. Lots of questions to ask and things to figure out but feeling good about the direction we have chosen to go. I so desperately wish my husband was with me to help go through this and make sure we are doing whatever we can for our girls. I don't believe though this will be the last time we will be here though. So glad God has this under control. We couldn't face this battle without him.

Now off to bed for some much needed sleep. Can't wait to share our exciting day tomorrow. Thanks for the prayers and support. Love you all.

About Me

I am a 39 year old wife and mother of two beautiful daughters who lost her career in the fire service due to Lyme Disease. I love my God and Savior, spending time with family, the beach and photography. I have been on a journey to get well since 2010. Now while still fighting my own health battles I am having to fight for my kids health too. Growing in my faith and strength each day.