Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1987, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.

We have a central helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad. We are supported by professional specialist advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation.

New Diagnosis? – Start Here

Here at the Myotonic Dystrophy Support Group we have taken a great deal of time and effort in compiling useful information designed to inform and assist our visitors. Click the link below to view in depth information covering everything from how Myotonic Dystrophy is inherited and how it can effect your health.