Patient Mentor Profile

Sean

Diagnosed in 2002

"I'm a patient in my early 30s. I'm currently a second year medical student. I sit on the Young Adult Advisory Board for PHA (Generation Hope) and help develop programing. I do fundraising for PH research and patient programming. I also recently developed a short cartoon series about PH which can be seen at LipsPaintedBlue.org. I have been kicking PH in the butt for years and intend to keep doing it for 100 more!"

About Sean:

Born in 1983

Lives in California

Type of PH: Idiopathic

Languages: English

Sean feels comfortable discussing his experiences with:

infused medication

oral medication

working with PH

traveling with PH

communicating with school personnel about PH

communicating with medical personnel

communicating with children about PH

local support groups

online communities (PHA email groups, message boards, chats)

Contact Sean:

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