is the story of one family's journey through life with a very special child with Down syndrome and a complicated medical history and how we have learned to DANCE through the tulips.

Thursday, February 18, 2010

Pale Feet

Do any of your kids with Ds (or without) get REALLY pale feet? Like NO color at all pale? Chloe will occasionally get these white feet and it's very weird looking. I'm going to email our pedi, but I thought I'd check with my blog friends first. :)

2 comments:

Don't know if it helps, but I get it quite a bit. I was diagnosed with Raynaud's Syndrome. I have to work hard to keep my feet and hands warm even when it is the slightest bit cold, or they turn white and numb. The only major issue is that there is an increased risk of frostbite when you have these issues. I feel for her, it is no fun!

Pray for Dillon

About Me

I am a 44-year-old woman whose life changed when I learned my third child would be born with Down syndrome. Right away I knew that our lives would be changed forever, I just never in my wildest dreams could have imagined it would be like this. This is my family's story.
In the months preceding the start of this blog, starting when Chloe was just 6 days old, she had 7 hospitalizations, 1 open-heart surgery, and 1 g-tube surgery. She was the youngest child at our hospital to ever be put on CPAP at home for Severe Obstructive Sleep Apnea. She had a TINY opening to her airway and therefore frequently suffered from upper respiratory incidents. Chloe also had GERD and was being considered for a Nissen Fundoplication. But she is an AMAZING fighter and the happiest girlI've ever known!