Cancer Survivors Network - Comments for "Cisplatins side effects"https://csn.cancer.org/node/251667
Comments for "Cisplatins side effects"en-csnMaybe after he makes the triphttps://csn.cancer.org/comment/1317363#comment-1317363
<a id="comment-1317363"></a>
<p><em>In reply to <a href="https://csn.cancer.org/comment/1316942#comment-1316942">Thanks</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>a time or two, he won't want to do it anymore? Driving back and forth sounds exhausting to me...and then there's the matter of the weather which can take some serious changes in a 4 hour drive. All I can tell you is that I was so grateful I stayed here for treatment, and didn't have to make any trips to be treated.</p>
<p>p</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 21 Dec 2012 01:53:15 +0000phrannie51comment 1317363 at https://csn.cancer.orgCISPLATIN AN ASSKICKER BUT WORTH IThttps://csn.cancer.org/comment/1317305#comment-1317305
<a id="comment-1317305"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/251667">Cisplatins side effects</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I took the 3 high doses and have 50% hearing loss in my right ear, and bad tinnitus, but you get used to it. I think getting it in smaller but more doses is good, as the drug does work.</p>
<p>Tuff it out and you will not regret it.</p>
<p>Mike</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 20 Dec 2012 23:47:07 +0000luv4lacrossecomment 1317305 at https://csn.cancer.orgDriving homehttps://csn.cancer.org/comment/1317128#comment-1317128
<a id="comment-1317128"></a>
<p><em>In reply to <a href="https://csn.cancer.org/comment/1316942#comment-1316942">Thanks</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Kirsten, </p>
<p>We are just short of two hours away from home, we commuted the first week and now are stating in the city of treatment because of swelling in the throat and nosebleeds from the car vibrations. So, as long as you have good roads and great shocks and full air in the tires, you might be good to go home. However, the partial packing, and unpacking, and traveling exhausted me, my husband was fine with it, but it takes a toll.</p>
<p>Remember to take care of yourself too.</p>
<p>Kari</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 20 Dec 2012 15:52:46 +0000NJShorecomment 1317128 at https://csn.cancer.orgjudgment callhttps://csn.cancer.org/comment/1317071#comment-1317071
<a id="comment-1317071"></a>
<p><em>In reply to <a href="https://csn.cancer.org/comment/1316942#comment-1316942">Thanks</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>To be honest with you, we did a drive like this. Six plus hours, each way. If I hadn't been doing well that would have been different. But doing well, we decided to drive.</p>
<p>Pat</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 20 Dec 2012 12:35:01 +0000longtermsurvivorcomment 1317071 at https://csn.cancer.orgI had the same...https://csn.cancer.org/comment/1316943#comment-1316943
<a id="comment-1316943"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/251667">Cisplatins side effects</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>First of all, best of luck to you and your husband. </p>
<p>I had the same Cisplatin plan.<br />
7 weekly treatments, every Monday. A lovely way to start the week. </p>
<p>So, I completed my treatments over 2 1/2 years ago. Along with the chemo, I had IMRT, Monday -Friday for 7 weeks...the full complement. I had unknown primary, so I was radiated left to right and up and down and all around.</p>
<p>And here's my experience in a nutshell: </p>
<p>It was very rough, but by the looks of your husbands picture...he can do this. Period.<br />
I was 49 yrs. old in good shape. I did not want a feeding tube, and made it without it.</p>
<p>Pain management is the key as well as caloric intake. Ensure &amp; Boost were my friends. </p>
<p>There's much more to share, if you have any questions...let me know. The folks here will provide piles of info for you. I rarely log on anymore. </p>
<p>I have been NED every scan. At my last scan my doctor at M.D. Anderson said goodbye...I no longer need to be scanned. As she put it..."at this point, the likelyhood of recurrence for your cancer is extremely rare". I'm now survivor status. </p>
<p>I consider myself extremely fortunate to be basically "back to normal" again. Any issues I have are so minor, they are part of the new normal. </p>
<p>My salivary function is at 90% of normal. My taste is 99% of normal. I have gained 30 pounds...10 lbs. off my starting weight. I take levothyroxin for my thyroid every morning. My ears used to ring from many live music shows, and they ring even more now. If they stopped ringing I would freak out. I've been accustomed to the ring tones... I don't need to shave under my chin or below jaw bone line. My hairline in back of my head is goofy. My jaws still get tight. My neck cramps now and then. I'm dry at night, but still use spray. </p>
<p>Hang in there and fight hard. Family, friends and faith carried me through that difficult time in my life. </p>
<p>Best regards and Merry Christmas,<br />
Chuck</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 20 Dec 2012 03:54:15 +0000RushFancomment 1316943 at https://csn.cancer.orgThankshttps://csn.cancer.org/comment/1316942#comment-1316942
<a id="comment-1316942"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/251667">Cisplatins side effects</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Thanks Phrannie, Rick, and Pat. I was thinking that it was more likely that he slept on that arm funny since it was only his one hand that was affected. And it has not come back since last night. We'll see if his next chemo on the 26 brings the same problem.....hope not. My husband wants to try to drive (me drive him) home on the weekends which is a 4 hour drive in good weather. I was thinking for 2-3 weekends yes but that probably it wouldn't be a good idea to be that far away from his MDs after that. Any thoughts?</p>
<p>Kirsten</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 20 Dec 2012 03:53:56 +0000vermontgirlcomment 1316942 at https://csn.cancer.orgThankshttps://csn.cancer.org/comment/1316934#comment-1316934
<a id="comment-1316934"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/251667">Cisplatins side effects</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Thanks Phrannie, Rick, and Pat. I was thinking that it was more likely that he slept on that arm funny since it was only his one hand that was affected. And it has not come back since last night. We'll see if his next chemo on the 26 brings the same problem.....hope not. My husband wants to try to drive (me drive him) home on the weekends which is a 4 hour drive in good weather. I was thinking for 2-3 weekends yes but that probably it wouldn't be a good idea to be that far away from his MDs after that. Any thoughts?</p>
<p>Kirsten</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 20 Dec 2012 03:33:30 +0000vermontgirlcomment 1316934 at https://csn.cancer.orgif this happend this quickly after infusionhttps://csn.cancer.org/comment/1316813#comment-1316813
<a id="comment-1316813"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/251667">Cisplatins side effects</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>it wasn't related to the cisplatinum. Very fine to see what happens, but I wouldn't worry about this as a platinol side effect.</p>
<p>Pat</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Wed, 19 Dec 2012 23:07:33 +0000longtermsurvivorcomment 1316813 at https://csn.cancer.orgOn Your Wayhttps://csn.cancer.org/comment/1316751#comment-1316751
<a id="comment-1316751"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/251667">Cisplatins side effects</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>It's good to get onto that treatment road (when treatment is necessary). I know that loud sounds can interact with some medications to produce hearing loss. So I would stay away from vacuum cleaners, leaf blowers and the like. Avoidance can't hurt. (Or am I just generating excuses for getting out of chores.) I had little trouble with my cisplatin-lite. Rick.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Wed, 19 Dec 2012 20:24:18 +0000ToBeGoldencomment 1316751 at https://csn.cancer.orgAt first I just hadhttps://csn.cancer.org/comment/1316739#comment-1316739
<a id="comment-1316739"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/251667">Cisplatins side effects</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Tingling in figertips...as I had more Cisplatin it stayed longer. By the last trestment it never went away and I still have 4 months out. I did have 6 large doses tho. The small doses may be the ticket for the neuropathy to be transient.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/251667%23comment-form">Log in</a> or <a href="/user/register?destination=node/251667%23comment-form">register</a> to post comments</span></li>
</ul>Wed, 19 Dec 2012 19:17:27 +0000phrannie51comment 1316739 at https://csn.cancer.org