Now it’s time for some action! Let’s look at some ways you can support your child to help them overcome some of their fears and get closer to finding their brave.

Overcoming fears – getting closer to brave

Feeling worried about the unknown or new situations is common and familiar to almost all of us.

For many children with autism, normal daily life can feel like the great unknown every day. If you’re worried about what’s going to happen, struggle with anxiety around people and social situations or can’t communicate what you want or need, every single day can feel scary and overwhelming. It’s very hard to ‘find your brave’ when you’re in a constant state of anxiety. Being scared and anxious is exhausting and can often lead us into more complex mental health problems.

There are strategies we can use to deal with these uncertainties and ways to learn skills that can help combat anxieties. It’s time to meet the superheroes – visual supports!!

Finding your brave – reducing uncertainty with visual supports

An intolerance of uncertainty is a common cause of anxiety for many children with autism, causing them to ‘act out’ or display other unwanted behaviours when their routines change or they are in unfamiliar situations.

A visual schedule or timetable takes away the element of surprise and makes it clear what your child can expect to happen. Their anxiety level will come down and it will be easier for them to transition between activities, finding their brave to move on.

In this diary entry, Tom felt worried because he didn’t know whether his Speech and Language therapist was visiting him at school that day. By reminding him to check the timetable in his planner, Tom was able to reassure himself about when to expect to see his therapist.

Helping your child to ‘find their brave’ for unfamiliar or ‘scary’ situations – things like visiting the dentist, doctor or hairdresser – is eased by good planning and preparation. Using a visual tool like TomTag or a simple social story can help you to communicate and explain to your child what’s going happen before the event, reducing the uncertainty and consequent anxieties.

Finding your brave – learning social skills with visual supports

Social cues can be difficult for many children with autism to understand as they interact with others. They get anxious about what is expected of them socially and can find if hard to interpret other people’s behaviour.

Visual prompts can be useful in teaching social rules such as sharing, taking turns and waiting. With practice and patience, children can learn to use these supports on their own in social situations, providing them with a permanent reminder of expectations and setting the stage for them to find their brave!

In the earlier example, Tom was worried about his speech therapist being late. Using drawings, we reminded him about the concept of waiting. Knowing what was expected of him in this situation and giving him some self-help strategies (OT exercises) helped to calm him down.

Finding your brave – communicating needs with visual supports

Sensory overload, changes to routine, difficulties processing information, being tired or hungry are all common triggers for anger and challenging behaviour. In these situations, it is almost impossible for a child to be brave.

Tom remembers what he sees rather than what he hears as he can’t process too many words at once. Ask him questions or give him instructions and his stress just increases – the more we talk, the less he hears! Offering children like Tom a non-verbal means of communication to use allows them to understand and express their feelings without the stress of having to process language at the same time.

The TomTag Share how I feel visual feelings scale is one of our best sellers – and you can see why! It’s such a simple device but a very quick, effective and efficient way for your child to show or tell you how they are feeling. Once they’re learnt to identify and understand what each feeling means, you can use more detailed visual guides to build self-help strategies they can use to cope with different feelings and emotions, giving them the reassurance and confidence they need to find their brave.

Christmas. Love it or hate it, it’s coming our way again – sooner than you think!

Because we know that this can be such a difficult, fraught and stressful time of year for families like ours, we’re sharing our best Tom Tag tips for an autism-tastic Christmas.

Follow these tips of planning, preparation and patience to get ready for an autism-friendly Christmas that’s just right for you and your family.

PART 1: Planning

#1: Project Christmas: Decide what’s the best way to ‘do’ Christmas for YOU and YOUR family

We love this idea from the Gina Davies Autism Centre. Grab a cuppa, a notebook and pen and start planning. Think about the whole upcoming Christmas period, not just the day itself. Reflecting on what was stressful last Christmas is a good starting point.

✍Make a list with four columns headed up Achievable, Desirable, High Risk, Impossible!

🤔Think about what is planned or expected over Christmas and place each activity under one of the four columns.

🗞Keep your plan to hand and add to it as necessary.

👏Don’t aim for 100% – if you can manage most of the achievable, one or two things in the desirable column and manage to come through everything in the risky column be proud of yourself – you’ve helped your family enjoy the bits of Christmas that work for them.

#2: Make a personalised ‘All about Christmas’ visual guide to show all the different things you might find or do at this time of year.

For example, a photo collage or Christmas scrapbook showing Christmas objects, Christmas food and activities that only happen at Christmas e.g. meeting Father Christmas or pulling Christmas crackers. You could also include pictures of your family celebrating Christmas.

Children with autism tend to forget social information so a permanent visual guide is a great way to remind them what Christmas looks like.

#3: Talk to your child’s school or support team so you know what different things they might be doing and when.

Ask them if they have a copy of this excellent autism advent calendar for schools from the National Autistic Society. If not, print a copy off for them to use to help your child manage during the Christmas period at school.

Have a meeting with your child’s teacher to plan together how you can help your child cope with the activities coming up. Keep communication going throughout the Christmas period with a ‘Home- School’ book such as the lovely one available from That Beautiful Mind.

#4: Take time to sit down with your child and talk through anything they might be finding confusing or unsettling about Christmastime and all its festivities.It’s often the little things we don’t even notice that can seem so huge to them.

Look back at your Christmas plan (see Planning tip #2) and for each planned activity or event, make a two-column list headed ‘Concerns and Solutions’. Ask your child what concerns they may have and then together think about and write down a solution.

For example…

🏘 a visit to family or friends

😟 worry about what they will drink

👍agree to take their favourite drink or ask the hosts whether they have it.

This think-say-do approach is a great way for dealing with uncertainties that occur throughout the year not just at Christmastime.

#5: Make realistic plans for your shopping needs.

Choose quieter times of day, take a list, use a babysitter, bring snacks, shop online.

Christmas shopping with a child who has autism is definitely a high-risk activity! Sounds, lights and the hustle and bustle of crowds – it’s easy to see why meltdowns occur and shopping trips are abandoned. There’s no need to be superhuman. Keep it simple, practical and do-able!

#6: Talk about social rules and different expectations that people might have around Christmastime.

Christmas is usually a time of increased social contact and festive events with family and friends. Use a visual schedule to show what’s going to happen before any visitors come to the house or when going to parties, visiting family and friends. Roleplay and practise greeting visitors appropriately and saying please and thank you.

#7: If your child has little or no interest in typical toys, make a list of alternative gift ideas that you can suggest to relatives and friends when they ask what presents they can buy.

Sensory Direct have a wide range of sensory toys and equipment for autistic children. You could also suggest something small and inexpensive and ask that any money left over is put towards an activity that your child enjoys or time with a favourite babysitter.

#8: Make sure visual schedules are updated to show any changes to routine or special festive events.

Using a visual schedule, like TomTag, at home or school is a great way to make sure that children with autism (like ours) know about and can prepare themselves for anything different that’s going to happen.

In our experience, front-loading any changes to routine early on means that they can be coped with. Later changes to routine (however small) can cause distress and anxiety. Check out our I know what to expect at Christmas and birthdays kit for ideas.

#9: Let your children help to choose and put up the decorations in and around your home.

Christmas decorations can be disruptive to children with autism. Consider decorating gradually over a few days so they are not overwhelmed immediately. If inside decorations are too much then decorate outside the house only.

Twinkly, shiny, glittery Christmas lights whilst enjoyable to look at can lead to sensory overload. Consider limiting the number on display and choose lights that have different settings you can control.

PART 2: Preparation

#1: Keep sensory armour to hand for trips to the shop, parties and other festive events where sensory experiences can easily become overloads

Sensory armour could include:

🎧 headphones to cut out some of the noise and sound

🧢 a cap to help shut out some of the flashing lights or people

🕶 dark glasses to reduce the light intensity

🧸 a favourite comforter for reassurance

🍪 small portions of snacks to help when things get tricky

#2: Prepare for visitors and visits from family and friends by talking to your child about who they are going to see and how to greet them

A personalised visual checklist is a great way to show your child who all the family members are that they may be meeting and what an appropriate social contact might be for each group. You can find appropriate symbols in our Christmas & Birthdays sticker pack (links below).

#3: Leave some areas of the house undecorated so there’s always a quiet place for your child to retreat to if they need it

Flashing lights, glittery objects and jingling bells all around the house are natural triggers for sensory overload. Having a Christmas – free zone to escape to can help bring stress levels caused by sensory overload down to more manageable levels.

#4: Discuss the escape plans that it’s ok for your child to use if everything gets too much for them

Having a calm and quiet place to escape the noise and bustle of Christmas is crucial. Agree with your child how they will let you know that they need to use it. For us, Tom showing me a simple red card when he’d had enough worked well.

#5: Think and talk about the extra social demands that might trigger anxieties or sensory problems

Spending time with family and friends, the expectation to be ‘happy’ and join in can be stressful for all of us – particularly for children with autism.

Use a visual schedule to explain what is going to happen and try to avoid social visits on consecutive days to allow for some downtime.

#6: Advent calendars are a great way to prepare for and understand the count down to Christmas

We love this idea from The Autism Page for a Christmas Book Advent Calendar. It combines the excitement of unwrapping a new Christmas book each day with the benefit of using the books to build up an understanding of Christmas.

#7: Be prepared that your child might not be able to sit at the table for as long as you would like (or maybe not at all). Warn your host if you are not having Christmas dinner at home.

It can be stressful to have your child’s behaviour ‘on display’ to family and friends at shared meals. Be practical, realistic and upfront about it. If your child only sits at the table for say three minutes usually then Christmas day is unlikely to be any different. Take turns to supervise them or provide them with something to keep them occupied.

Keep working on mealtime skills at home and maybe next year will be different!

#8: For children who won’t eat a traditional Christmas dinner or the main meal you’re serving, prepare and freeze their meals in advance to reduce workload on the day

Just don’t forget to get them back out of the freezer in time!

#9: Consider your child’s sensory needs when wrapping up presents. There’s lots of great alternatives to traditional Christmas paper such as foil or fabric.

The choice of alternatives will depend on whether the sensory issues relate to over or under sensitivities. Aluminium kitchen foil is brilliant for quickly wrapping all sorts of odd shapes and sizes as well as being shiny and noisy if your child likes that kind of sensory input. For something more gentle, calming and simple to open, try fabric tied with a ribbon where just a quick pull will reveal the gift. The bonus is that these options are eco-friendly too.

#10: If toys need assembling or batteries putting in before they can be used, do this before wrapping them up so that they can be played with straight away on Christmas day

It’s always worth checking inside boxes and packaging even if you’re not expecting there to be any assembly required as those pesky ties and tape seem to get everywhere!

PART 3: Patience

#1 In the build up to Christmas, remember to exercise some self care so that you can manage your energy levels and remain focused on what you and your child can realistically achieve

Play some relaxing music, burn some scented candles, take a relaxing hot bath to relax. Practise breathing!

#2 Take the time to read social stories with your child about what to expect at Christmas, including meeting with Santa.

Social stories are particularly helpful for activities that only happen at Christmas. You can make your own or check out the FREE printable Christmas social story about meeting Santa on the wonderful parenting blog And Next Comes L – Hyperlexia & Autism Resources

#3 Christmas is a time when sensory issues are greater than ever. To help prevent sensory sensitivities becoming overloads, allow your child to have some control over these experiences.

Where possible let your child have direct control of their sensory experience. For example, hand them control of buttons for the lights (if appropriate) or provide sensory defences like ear defenders or sunglasses.

#4 Many children with autism don’t like surprises so it might help not to wrap presents up.

You could also just tell them what’s inside or use clear cellophane or plain paper for wrapping. If your child finds wrapping paper highly confusing, e.g. thinks that pictures on the paper show what’s inside, then using plain wrapping paper with a clear picture of the contents stuck on the outside will help.

#5 If your child has dietary restrictions, don’t despair. Accept where your chid is now with their food and be patient.

Preferences change so it might not be the same next year!

If you are eating with other people at their house and your child won’t eat any of the food or insists on a particular plate, cup, spoon etc. provide these things so your child can join the party briefly and tell the hosts in advance.

#6 Get some Christmas helpers! Be patient with yourself and ask for help with preparations from family and friends.

Encouraging the whole family to get involved makes everyone feel included and part of the Christmas build-up. Don’t feel like you have to power through on your own.

#7 Buy or make your child’s Christmas costume or party outfit early and let them wear it around the house for short periods of time to help them become comfortable with how it feels.

Costumes and new clothes can be challenging for children with sensory sensitivities. Encouraging them to wear these around the house helps them become more tolerant of the different fabrics against their skin.

#8 Playfully and patiently practise Christmas traditions such as receiving and unwrapping presents and pulling crackers so that your child knows what to expect and can join in.

Play wrapping games by wrapping up items so your child gets used to opening the paper and finding something inside. Buy some cheap crackers and show your child how to pull them and shout ‘bang’ so the noise doesn’t come as a surprise. Practise wearing hats and reading jokes.

#9 Some children may be overwhelmed by a large number of presents all at once.

It’s natural to want to spoil them but be patient and try introducing gifts one at a time over the day or over several days. Alternatively, adopt an advent style approach and bring out a small gift each day on the run-up to Christmas day.

#10 Have the Christmas that suits your family as it is now. Forget about the perfect day, embrace the imperfections and enjoy your special moments

Remember that this is your Christmas too. Try and relax and enjoy the bits that work well. Recognise that some things are too hard at the moment but with patience and practise they may well be achievable next year.

Dyslexia is most commonly understood as a condition that causes difficulties with reading. It is less well known that dyslexia can also impact on organisation and time management skills, which is sometimes referred to as executive functioning.

What are the signs?

A child with dyslexia who has executive functioning issues may have difficulty:

remembering to take to school everything they need for the day

being organised and preparing their kit in advance

sticking with an activity and not being distracted

understanding what day of the week it is and what different things they need to do each day

remembering their routine and prioritising the tasks needed to get ready for school

What can you do to help?

There’s lots you can do to help a child with these issues. Here’s just a few ideas:

Get into a regular routine and stick to it. Children who struggle with time management often feel more secure and less anxious with a familiar routine.

Make checklists to break down a task or routine into smaller steps. Visual prompts work better than verbal reminders as they are constant and consistent.

Use calendars and planners – colour-coding often works really way to identify regular activities and highlight special events.

Encourage development of organisational skills with lots of repetition, reminders and practice.

How could TomTag help?

TomTag is ideal for all children with dyslexia as the picture symbols we use are easily recognisable and don’t rely on a child’s ability to read for TomTag to be effective.

Make morning and evening routine reminders for tasks that need to be completed and the order they should be done using an I know what to expect – morning and evening minikit or for more varied options try these kits I can do it self care skills or I know what to expect at home

Create a school bag packing checklist using the I can do it pack my bag for school kit that will remind them exactly what they need to take to school each day, and bring home again.

Take advantage of TomTag’s colourful tags by colour-coordinating checklist and routine reminder tags with any planners, calendars or charts that you’re also using.