Hi my name is Sarah I'm a nurse (13 yrs & counting) diagnosed with fibromyalgia 5yrs ago along with joint hypermobility (overextending joints). I just wanted to share a few things I feel that have helped me. 1. Try CHERRY ACTIVE (juice/capsules) from Amazon I've tried optimal and pure nature high strength these give a better quality of sleep than just with amitriptyline alone (athletes use these for muscle recovery). Also I've found that a CLEAN diet helps ibs symptoms (mine almost none existent). Whilst I've been on an even keel for 4 years unfortunately I've begun with insomnia recently,dramatic increase in pain and very low moods. After lots of research I've found that diet/allergies/inflammatory responses and pain can help fibromyalgia pts by improved diet esp wheat/gluten. Unfortunately I also find GPS unhelpful at times and put things off as much as possible. Hope these help!

13 Replies

A very warm welcome to you I too have been taking Cherry active for approx 2 years, recommended by my fabulous Chiropractor. I purchase them from H&B, as some of the one's on the internet are fake and full of fillers, Unfortunately I am very carefull now as have been stung by this in the past. You live and learn eh!!!!!

There are a lot of fabulous fibro friends on this site, offering wonderful support and guidence, we are all here to help one another.

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun!

I have pasted you a link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information:

Hi my name is Maggie, i was finally diagnosed with fibro 3yrs ago but had been struggling with all the symptoms for about 10yrs prior. Never heard of the cherry active but think i'll give it a go, thanks.

Sorry to hear you have hit a rough patch, I sincerely hope you get sorted out soon and as my mother would say give yourself a kick up the bum to pick yourself up a bit lol. I have to smile at that as I am low a lot of the time and not having her around I just hear her saying it! Anyways....

I was wandering if I could pick your brains?

You mentioned cherry Active capsules? My daughter is suffering terribly with Restless arms and legs day and night as she has been taken off all her Fibro meds as she is in early stages of pregnancy, and she hasn't slept properly for weeks and she is exhausted. Would she be able to take these capsules?

The information you have given is great Sarah thank you and yes you are right about the GPs they do so much with you and then that's it your basically on your own, I have found a lot of information and remedies on Pinterest, foods especially as I have just gone gluten free well nearly, I have cervical stenosis and my GP has been no help I am in so much pain daily but I have found exercises on Pinterest even my physio didn't give me just goes to show you how much you can find out on your own, I alway get it checked medically first so am good to go on things.

I don't see any reason why not as Its a natural substance that has been successful with fibromyalgia patients, gout patients and I think those with high b.p. what I've learnt with fibromyalgia is that the body seems sensitive to lowered levels of vitamins,minerals and amino acids such as b vitamins, vitamin d , magnesium etc which I believe is the reason why our bloods come back negative! And sensitivity to wheat /gluten seems to be a regular theme also it may be worth trying that or what I have done quite well is swap dairy for almond/rice milk. When I went back to dairy have stomachs cramps so worth a try?

Hi Kimble I believe the caps are 500mg but I buy the extra strength 750mg (you can take 1-2 as I found it cheaper than the liquid which is just 30mls each night.) I used to have the liquid undiluted but it probably won't make much difference either way! I wont be without these n o w but I've recently added in melatonin tablets as I've experience with these being used well in critically ill patients as Its a naturally occurring hormone in our bodies anyway. I do still take my regular naproxen/pregabalin/amitriptiline as I can't get off these though I have lowered the dose with these until recently as I've fallen off my even keel