Vitamin B12 deficiency Charity Support Group

The B12 Deficiency Support Group (B12d, for short) is a charity. Our aims are to:

Raise awareness of this condition amongst doctors and the general public, so that people can be diagnosed appropriately.

Explain the signs and symptoms that a doctor or person who is diagnosing themselves should look out for, and how to make sure that you reach the right diagnosis and don't confuse B12 deficiency with something else.

Ensure treatment is tailored to the needs of the patient, and where possible, make treatment available free at the point of need.

We rely entirely on donations, and our donations are used almost entirely to buy B12 to fulfil requests. NHS does not fund any of our B12, although NHS will fund some B12 for some patients - directly via your doctor. We show here and in our audits that a much wider range of conditions can beneficially be treated with Vitamin B12 replacement therapy.

Lastly, please can you help us. 1) use the calculator to check your symptoms 2) if you need advice, send an email to notifications@b12d.org 3) if you need B12, please use the Members' Area to request (if you email to request, it creates a lot of extra work. If you put your symptoms on the request area, Dr Chandy won't see them) 4) please donate. We can't send B12 unless we can afford to buy it.

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The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)

New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.

Just the way it works for humans, oral B12 can make a world of a difference for your pet. My old cat Smudge chases the young cat again, climbs ladders (and climbs down herself), and is generally as fit as she was many years ago.

Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.

Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.

The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.

June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy

The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.

Donna, like so many women, wants to live a normal life. Vitamin B12 could give her that chance.

Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.