"Waste of train fares. Rude,..."

Secretary was polite on the phone when I spoke to dispute an incorrect diagnosis the neurologist made.

What could be improved

I was incorrectly diagnosed with N.E.A.D by the neurologist and told, by him, to "look it up online when you get home." Which I did do, only to discover that the test I asked him for, which he refused, is vital in diagnosing this condition. Anti seizure medications also do not work on patients with N.E.A.D, the neurologist was aware I was having succes with Topamax (an anti-seizure medication) when he made this incorrect diagnosis. He arranged no tests in reaching this wrong diagnosis, it was based simply on his prejudges.

He also refused to listen when I explained that the seizures did in fact affect my lower body.

His knowledge of epilepsy was somewhat limited to the point where it affects the ability to make correct diagnoses.

He also interupted when me and my sister were trying to explain things.

Anything else?

I have had problems with a previous hospital. Unfortunately, the neurologist knew the person I had had problems with, and let his personal relationship with this person get in the way of his ability to do his job. After learning I had problems with this person, his voice was raised and patronising and his tone changed.

He actually said to me "It's good you're not having grand mal seizures." as if partial seizures don't matter. He is not arranging any tests either, he just does not care. He was eager to get rid of me Exact quote: "The next patient will be waiting, it's not fair on them."

His diagnosis is so incorrect and doesn't fit, that I can actually prove without a doubt that I do not suffer from N.E.A.D.

Responses

Thank you for taking the time to post your feedback. The Walton Trust has taken a note of your comments and has given this feedback to the relevant Managers, and to take action where necessary. We are keen to develop our services and this information is helpful for us to continue to improve our patient experience. If you would like to provide us with any further information or feedback you can contact us directly at customer.careteam@thewaltoncentre.nhs.uk and on 0151 529 5530/5517/4641/6100.

Thank you for taking the time to post your feedback. The Walton Trust has taken a note of your comments and has given this feedback to the relevant Managers, and to take action where necessary. We are keen to develop our services and this information is helpful for us to continue to improve our patient experience. If you would like to provide us with any further information or feedback you can contact us directly at customer.careteam@thewaltoncentre.nhs.uk and on 0151 529 5530/5517/4641/6100.