I must offer my sincerest of apologies for not publishing any post today about " Living with Fibromyalgia and Chronic Fatigue Syndrome (CFS)" Unfortunately, I'm not having a good day. Instead, I ask of you to have a moment of caring thoughts and prayers for Jami Pereira, who is diagnosed with stage four Advanced Adeno Carcinoma of both lungs.Cancer Care for Jami

Thursday, March 21, 2013

The United Nations Educational, Scientific, and Cultural Organization (UNESCO) declared in 1999, that the World Poetry Day would be held each year on March 21. The purpose of the day is to support and appreciate poets and poetry around the world. To promote the reading, writing, publishing and teaching of poetry throughout the world, and give fresh recognition and impetus to national, regional and international poetry movements.

So I feel there's no better day than today, than to pay a tribute to a very talented poet and writer. Her name is Jami Pereira, and I'm so happy and honored to be able to post one of her poems here on my blog.

Jami has stage four Advanced Adeno carcinoma of both lungs. There is not much hope for her to fight this if she does not get the treatments she needs, and quick. The doctors prognosis that without treatment, Jami has four to six months to live, maybe a little more, maybe a little less. Unfortunately, she has used up all of her insurance benefits, and lost her job because of her illness. So it's not possible for Jami to afford her crucial medical treatments, unless she gets some financial help. So, I ask, as a friend of Jami for some help. Any small amount will help Jami tremendously. This is the link to her page: Cancer Care for Jami . Any help is a blessing, and all prayers are welcomed.

Jami's perseverance while battling stage four Advanced Adeno carcinoma of both lungs is beyond inspirational. Through her pain and worries every single day and night, she shows tremendous strength to stay calm, and even cheerful through this horrible and painful ordeal. She shows so much courage and determination, fighting for her own life. Jami's sweet and kind personality radiates with her positive attitude, her faith in our Lord, and her love for life. She has a unique talent as a writer and poet, and her work is a Gift to the World. and she has still so much to give. I truly admire her so. She is such a beautiful soul.

Wednesday, March 20, 2013

As some of you may know, I am dedicating Tuesdays to write about my two illnesses, Fibromyalgia and Chronic Fatigue Syndrome (CFS). However, when you are living with FM and CFS, things usually do not go as planned. There will always be the usual obstacles in the way, that will make it hard to finish anything at all, like pain, exhaustion, brain fog, anxiety and so much more.

Then there are other unexpected obstacles and interruptions like the internet connection is down, too many phone-calls, too many emails that needs to be replied to, too much pain which in turn will make my writing slow. . . and all those expected and unexpected obstacles will as a result make my stress levels to rise, and my Fibromyalgia symptoms worsen.

Stress Is One Of My Biggest Enemies

When I notice, I'm not able or have the time to go through with what I had planned, then my stress level hits the roof and that's when I lose control over myself. I stop function all together, and I go into this foggy world of so much sadness, confusion, aggravation and worthlessness. When I'm in there, it takes all my willpower to try to find the opening and get the hell out of there as fast as I can, or it will trap me in there for days and days.

The Person I Once Was
Nobody knows me better than I know myself, so when I see myself in my own mind's eye, it's rather frightening. How can this person possible be the same efficient person who once could do multitasks like no other. Quick, hardworking and full of energy. Stress – No problem! There was always thousands of projects going on at the same time. There was no limit to what I could accomplish in one day, and look at me now, I can't even complete a freakin' blog post.

Stress Triggers Fibro Flares
In order to better cope with my Fibromyalgia, I have to eliminate as much stress from my life as possible. I have to stop delaying things until the last moment ( like a blog post) and start organize my life in order not to trigger any stress. I should start making lists and finding ways to get things done without the pressure of a ticking clock and get my stress under control. I just wish, somehow in my foggy brain, I could remember all those things.

As Soon as Stress Enters My Life - My Symptoms Escalate

People who suffer from Fibromyalgia experience pain, exhaustion, sleep disturbances, fibro-fog, indigestion, headaches and much more. When stress is added, our symptoms escalate, and then we get more stressed as a result. This is what happened to me yesterday, with the conclusion, I could not finish writing the original blog post that was intended, and nothing else for that matter. Hopefully, that post will be completed by next week, as long as I do not let stress enter my life once again.

So for all of you who thinks Fibromyalgia is just about pain, I just want to say, it is so much more.

Tuesday, March 5, 2013

I do not blame my family, friends and neighborsif they are feeling confused, many times when they see me. There are times, I can feel quite wonderful, even if my pain is constantly with me. Other times, I can feel so sad or confused. Then there are times, no one sees me at all, since I can't bear to meet, be seen, or even talk to anyone. These stages in my mood can change rapidly from day to day, or from hour to hour. So how can anyone possible understand what's going on with me? One minute they see me like a vibrant, fresh rose, the next minute, I'm wilting, fading away. . .

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Sannel Larson

Hello, my name is Sannel and welcome to my world in a nutshell. Writing and illustrating is my life, and through this site, I'll share with you my interests and thoughts on life, and that could be about absolutely anything and everything. If you are interested in poetry, please visit my other blog " Sannel's World of Poetry" and take a look at some of my work. Enjoy your stay here, and I hope to see you soon again. Hugs, Sannel