Hi group! I wanted to post something that has been most helpful with the lymphedema I experience. I experience the whole body lymphedema from 21 surgeries resulting from a car wreck. I normally don't function too well once the weather gets above 60 degrees. It has been up to 90 degrees and I have been doing quite well. I almost forgot what it was like to experience the pain and exhaustion of lymphedema until today.

I had been drinking this drink called Komboucha tea. It is an ancient fermented beverage. It aids our digestion and detoxifies your body! I was doing so well I started to drink a lot of it, like 2+ cups per day. I began having trouble with either my adrenal glands and/or my kidneys. I got an hour long MLD treatment yesterday and my therapist and I thought it would be a good idea to lay off of the komboucha to see if it was what was causing the discomfort.

Today I slept most of the day and was completely exhausted! Guess what-I had no komboucha tea! I decided that if I was going to be able to eat and half way function, I needed to drink some komboucha tea. I drank about 4 ounces and am feeling back to normal now. I am amazed at how wonderful this drink has been for my lymphatic system.

I would normally sleep with a labia pad/pillow and compression shorts at night. Since I have been drinking this tea, for about 3 weeks, I have not had to use the labia pad/pillow! There is no swelling there, and the swelling in my head and neck is virtually gone. As long as I don't sit too long, like 2-3 hours without moving, I feel great!

Today without the komboucha tea was a real wake up call to me. I make my own tea at home so it doesn't cost hardly anything to make, and it gives me my life back. I hope this helps anyone who is willing to give it a try. I am available if you have any questions.

Super welcome to our family and thank you for the interesting post. like you, I also have all over lymphedema. The all over started in 2006 and we suspect that Rituxan chemo therapy triggered it.

The most debilitating problem I have is severe pleural effusions. I have to drain my lungs every three days and am on oxygen 24/7.

The frustrating thing for me was that I was not able to find any documented evidence for Komboucha tea. As an evidence based site, the first thing we look for is "is there scientific proof" a substance, drink, herb or medicine actually works - and - is it safe?

I did find serious complications that have been associated with the tea, This is what the CDC had to say about the subject:

Kombucha tea is a popular health beverage made by incubating the Kombucha mushroom in sweet black tea. Although advocates of Kombucha tea have attributed many therapeutic effects to the drink (1-3), its beneficial and/or adverse effects have not been determined scientifically. During April 1995, cases of unexplained severe illness (including one death) occurred in two persons in a rural town in northwestern Iowa who had been drinking Kombucha tea daily for approximately 2 months. Based on the findings of a preliminary investigation by the Iowa Department of Public Health (IDPH), on April 10 IDPH issued a news release recommending that persons refrain from drinking Kombucha tea until the role of the tea in the two cases of illness had been evaluated fully. This report summarizes the investigation of these cases by the IDPH, CDC, and the Food and Drug Administration (FDA). Patient 1

On April 1, a 59-year-old woman was found unconscious in her home by a neighbor and was transported to a local hospital. On arrival in the emergency department, respiratory therapy was initiated with oxygen. Her family members reported that, 1 hour earlier, she appeared fatigued but had no specific medical complaints. Analysis of arterial blood samples indicated severe metabolic acidosis; her pH level was 6.9 (normal: 7.37-7.43); pO2, 474.9 mm Hg (normal: 75-80 mm Hg); and pCO2, 39.2 mm Hg (normal: 35-45 mm Hg). She also had elevated levels of lactic acid (9.85 mM {normal: 0.67 mM-2.47 mM}) and a base excess of -19.5 (normal: -2- +2). Her daughter and her primary physician reported that she took medications for hypertension, anemia, and mild renal insufficiency. Soon after admission, symptoms of disseminated intravascular coagulopathy began; she suffered cardiac arrest and was resuscitated, but her condition continued to deteriorate. She died on April 3.

The cause of the woman's acute metabolic disorder was not established. An autopsy detected evidence of peritonitis with fecal contamination of the peritoneal cavity, although the location of perforation could not be determined. Neither the woman's clinical history nor autopsy findings supported a cardiogenic cause. Toxicologic analyses for a series of prescription and nonprescription drugs and carbon monoxide and cyanide poisoning were negative. Her daughter reported that, during the previous 2 months, the patient had drank approximately 4 oz of Kombucha tea daily. Patient 2

On April 10, a previously healthy 48-year-old woman had onset of shortness of breath and was transported by ambulance to the same hospital as patient 1. On admission, she was in respiratory distress. Chest radiographs revealed extensive acute pulmonary edema. Analysis of arterial blood samples indicated severe metabolic acidosis with uncompensated respiratory acidosis; her pH level was 6.7; pO2, 86 mm Hg; and pCO2, 67 mm Hg. She had elevated levels of lactic acid (12.4 mM) and a base excess of -28. The woman suffered cardiac arrest but was resuscitated and stabilized. She improved and was discharged on April 13.

Toxicologic analyses for a series of prescription and nonprescription drugs were negative, and there was no evidence of a septic or cardiogenic cause. The patient reported drinking Kombucha tea during the previous 2 months and had obtained her original mushroom from the same person as patient 1. On April 10, immediately before the onset of illness, she had increased the amount of tea she consumed from 4 oz daily to 12 oz, and she had increased the period of incubation for that batch of tea from 7 days to 14 days. Investigation The mushrooms used by both women were derived from the same parent mushroom. At least 115 additional persons in the town had used or were using mushrooms from the same source as for the two ill women, but no other cases of unexplained acute illness were reported among these persons. A review of hospital emergency department records for March 1-April 10 did not detect other cases of unexplained lactic acidosis or other likely cases of tea-associated acute illness.

Samples of the mushrooms and samples of the tea consumed by both case-patients were sent to FDA for analysis. Microbiologic analysis of the tea and mushrooms identified several species of yeast and bacteria, including Saccharomyces cerevisiae and Candida valida. No known human pathogens or toxin-producing organisms were identified. The alcohol content of the tea ranged from 0.7% to 1.3%; no methanol was detected.

To characterize the methods used for preparing the tea, IDPH and CDC surveyed a nonrandom sample of 24 persons in the town who regularly drank Kombucha tea. The average age of survey participants was 57.1 years. Of the 21 participants for whom information was available, 20 had obtained their mushrooms from friends or relatives, and 15 (71%) of these had given mushrooms to their friends. One person had purchased a mushroom from a commercial producer. Of the 20 participants who had prepared the tea themselves, most (12 {60%}) reported incubating the Kombucha mushroom at room temperature for 7-10 days in 3 quarts of sweetened tea and drinking 4 oz of it per day. Patient 1 followed this regimen; patient 2 had incubated the mushroom longer (14 days) and consumed more tea (12 oz per day). Five (25%) other persons who had prepared their own tea reported incubating the mushroom for 13-14 days, and two (8%) of the 24 total participants reported consuming up to 8 oz of tea per day. Of the 21 persons for whom information was available, five (23%) discarded batches of tea because of their concerns about the appearance or taste of the tea or because of visible mold growth. Prevalence of Kombucha Tea Drinking

To assess the prevalence of Kombucha tea drinking in the town, a 1% sample of households (n=129) was contacted by telephone using random-digit dialing. The mean age of the respondents was 51.2 years (standard deviation= plus or minus 19.5 years), and 91 (70%) were women. Five persons (3.8%; 95% confidence interval {CI}=1.4%- 8.4%) reported that at least one household member had tried Kombucha tea. Of these, two (1.6% of total sample; 95% CI=0.3%- 5.0%) were persons who had regularly consumed the tea. Both had stopped drinking the tea after less than 2 weeks -- one because of the tea's taste and one because of symptoms unrelated to those of the two patients.

Editorial Note: The Kombucha "mushroom" is a symbiotic colony of several species of yeast and bacteria that are bound together by a surrounding thin membrane. Although the composition of the Kombucha colony varies, some of the species reportedly found in the mushroom include S. ludwigii, S. pombe, Bacterium xylinum, B. gluconicum, B. xylinoides, B. katogenum, Pichia fermentans, and Torula sp. (1). Kombucha tea can contain up to 1.5% alcohol and a variety of other metabolites (e.g., ethyl acetate, acetic acid, and lactate). During incubation, the thin, gelatinous mushroom floats in the tea and duplicates itself by producing a "baby" on top of the original mushroom. These offspring are then given to other persons for starting their own cultures. Although there are at least two commercial producers of Kombucha mushrooms in the United States, the sharing of the mushrooms is believed to have helped to promote its popularity in the United States.

Beneficial effects attributed to consumption of Kombucha tea have included prevention of cancer, relief of arthritis, treatment of insomnia, and stimulation of regrowth of hair (1-3). Because the tea is believed to stimulate the immune system, it has become popular among persons with human immunodeficiency virus infection (3). In addition, the investigation in Iowa suggests that the tea has become popular among the elderly (who are less likely to try alternative therapies) (4).

FDA has evaluated the practices of the commercial producers of the Kombucha mushroom and has found no pathogenic organisms or hygiene violations (5). However, because the tea is produced under varying conditions in individual homes, contamination with pathogenic organisms such as Aspergillus is possible. When prepared as directed, the pH of the tea decreases to 1.8 in 24 hours. Although this level of acidity should prevent the survival of most potentially contaminating organisms, tea drinkers have reported molds growing on the Kombucha (CDC, unpublished data).

Because folk medicines and herbal remedies, including Kombucha tea, are considered neither a food nor a drug (6-8), they are not routinely evaluated by FDA or the U.S. Department of Agriculture. Although the investigation described in this report did not establish a causal link between the illness of the two women and their consumption of Kombucha tea, reasons for the occurrence and severity of the lactic acidosis in both cases have not been determined. Drinking this tea in quantities typically consumed (approximately 4 oz daily) may not cause adverse effects in healthy persons; however, the potential health risks are unknown for those with preexisting health problems or those who drink excessive quantities of the tea.

Because of the acidity of Kombucha tea, it should not be prepared or stored in containers made from materials such as ceramic or lead crystal, which both contain toxic elements than can leach into the tea. Because of the increasing use of this tea (even in groups that usually do not use alternative therapies), health-care professionals should consider consumption of Kombucha tea in the differential diagnosis of persons with unexplained lactic acidosis. Physicians and the public should report adverse health effects associated with consumption of Kombucha tea to FDA's MedWatch program, telephone (800) 332-1088 or (301) 738-7553.

Introduction: Kombucha ``mushroom'' tea is touted to have medicinal properties. Here, we present a case of hyperthermia, lactic acidosis, and acute renal failure within 15 hours of Kombucha tea ingestion. Case Presentation: A 22 year old male, newly diagnosed with HIV, became short of breath and febrile to 103.0F, within twelve hours of Kombucha tea ingestion. He subsequently became combative and confused, requiring sedation and intubation for airway control. Laboratories revealed a lactate of 12.9 mmol/L, and serum creatinine of 2.1 mg/dL. Discussion: Kombucha tea is black tea fermented in a yeast-bacteria medium. Several case reports exist of serious, and sometimes fatal, hepatic dysfunction and lactic acidosis within close proximity to ingestion. Conclusion: While Kombucha tea is considered a healthy elixir, the limited evidence currently available raises considerable concern that it may pose serious health risks. Consumption of this tea should be discouraged, as it may be associated with life-threatening lactic acidosis.

This is enough for me to simply say that people really need to stay away from this. The complete lack of scientific evidence, the claims of misleading information regarding both the effect and the ingrediants and finally the complications very often associated with it, make it simply too dangerous and risky for people to use.

Hi group, it is Cinda again. I wanted to let you all know that I ran into problems with the Komboucha Tea. I really do miss it!!! Evidently my kidney's could not handle the extra fluid and I began experiencing blood in my urine with pain in my low back. So beware, it is good, but if your kidney's start hurting, stop and see if they feel better. Good luck to anyone who gives it a try. Komboucha Tea is greatly missed!