What’s Your Story? We’d love to hear it!

Thank you for taking the time to provide this information.

Over the years FIRST has collected and shared hundreds of “life stories,” as storytelling offers a meaningful way for
members to open up and communicate their most significant, emotional, and inspirational moments. Stories, after all, are the road to deep and meaningful connections. And, equally as important, stories can heal. Over and over again we are thanked for the hope and encouragement these member stories offer to people affected by ichthyosis, all over the world.If you have a story to share about living with ichthyosis (and some great pics to go along with it!) please send your submission of 500 words or less to Communications Director, Maureen Neville at mneville@firstskinfoundation.org. You will be contacted for approval and confirmation, prior to your story being published on our website, blog, social media channels, upcoming e-communications, or quarterly newsletter.