Pompe Links

International Funds For Children In Need

The Bill & Melinda Gates Foundation is dedicated to improving people’s lives by sharing advances in health and learning with the global community. We look for strategic opportunities to extend the benefits of modern technologies around the world, especially where poverty serves as an obstacle to participating in these benefits.
E-mail: info@gatesfoundation.org

Climb is committed to fighting metabolic diseases through research, awareness and support. We are the UK’s only dedicated organisation to provide advice, information and support on all metabolic diseases to children, young adults, families, carers and professionals.
E-mail lesley@climb.org.uk

The Christian Children’s Fund of Canada reaches out around the world to needy children, with our colleagues in developing countries, we emphasize a child-centered community development ministry, starting with basic assistance, and leading to programs stressing self-help and eventual independence. Integrity is the common thread of all activities, embracing accountability, innovation, and above all, service to our partners at home and abroad.
E-mail: helpdesk@ccfcanada.ca

Every Child is an international development charity that works with the most vulnerable and marginalised children in 18 of the world’s poorest countries. We work with vulnerable children, families and communities to eradicate poverty and social injustice. We focus our resources on the most vulnerable and marginalised children and communities in our project countries regardles of religion, ethnicity, gender, disability or culture.

Global Care is an international Christian charity providing care, relief, development, education and other programmes for some of the world’s neediest children and young people.
E-mail: HQ@globalcare.org.uk

Healthlink Worldwide works in partnership with organisations in developing countries to improve the health and well-being of poor and vulnerable communities by strengthening the provision, use and impact of information.
E-mail: info@healthlink.org.uk

This is an organization set up to assist those individuals with a very rare and fatal disease, known as Acid Maltase Deficiency (AMD) Helping hands will provide financial assistantce for various expenses needed for those with AMD, while waiting for treatment to be available.
E-mail: clpoague@aol.com

KinderUSA is an international humanitarian organization based in the United States that was founded by a group of American Muslim physicians and relief workers. With a support network of professionals across the globe, the work of KinderUSA is guided by the tenets of Islam relating to the importance of alleviating human suffering and fostering of charity, kindness, and justice.
KinderUSA believes that we must not ignore a child’s plea for help and that all children are born with fundamental freedoms. They are entitled to the rights of survival, health, and education. KinderUSA puts into action programs designed to ensure these rights are not forgotten.
E-mail: kinder@kinderusa.org

The PCRF is committed to initiating and supporting medical projects in the Middle East that improve the quality of health care for injured and sick Arab children. Not only do we send Arab children for free medical care in North America, Europe and the Middle East, but we also support other relief projects, such as sending volunteer teams of surgeons and other medical personnel to treat patients and train professionals there in an effort to improve the quality of health care and address serious problems in health related issues.
E-mail: pcrf@pcrf.net

The Cruse Foundation is a non-profit organization raising money for a rare genetic disease. The founders Greg and Nancy founded the organization after losing two children from this crucial disease. After their loss they have been motivated to raise money to help others with the disease and haven't stopped since. With your support you can help change someone's life forever. - Taken from the Facebook Page www.facebook.com/PompesDiseaseAwareness

Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.
E-mail: mercymedical@erols.com
(For the US only)

Tong-Len is a non-governmental organisation (NGO) based in Himachal Pradesh, India. We support internally-displaced communities living in Himachal’s Kangra Valley.
Tong-Len aims to help these communities achieve a secure and sustainable future by addressing the root causes of their poverty and ill-health through a range of education and health-based projects.
Although we do not work exclusively with children, child education and sponsorship is our primary concern.
We are registered in India, and are in the process of registering in the UK.

The relief of children in the UK and World-wide, under 18 years of age who are suffering from serious illness or handicap, in particular but not by way of limitation, scoliosis or any disability that restricts the quality of life of any child. We do our best to help all children regardless of creed or colour, it does not matter to us what illness they may be suffering from, all that matters is that we may be able to help each special child in some way and that is enough of a reward for the volunteers of our charity.
E-mail: info@willowfoundation.co.uk

Featured Link

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.