Blood And Biopsy Results

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My celiac blood panel and biopsy results were all negative, however, I have been strictly gluten free for 3 months (w/ a few accidental glutenings) and gluten "light" for almost 2 years. My most recent stool test still showed a high positive for gliadin antibodies. My doctor, who is a well known celiac specialist, told me not to do a gluten challenge because it is barbaric as she put it. I will follow up with her next week, but is there any chance that i may not even have celiac and that its just a gluten intolerance?

My celiac blood panel and biopsy results were all negative, however, I have been strictly gluten free for 3 months (w/ a few accidental glutenings) and gluten "light" for almost 2 years. My most recent stool test still showed a high positive for gliadin antibodies. My doctor, who is a well known celiac specialist, told me not to do a gluten challenge because it is barbaric as she put it. I will follow up with her next week, but is there any chance that i may not even have celiac and that its just a gluten intolerance?

It really makes no difference which you have. IMHO. You need to be strict no matter what it is labeled.

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There are many who believe that gluten intolerance is a baby case of Celiac. Same thing, just hasn't gotten bad enough to damage the intestines. In your case, you've been almost 100% gluten free long enough to skew the results, so you may not have gotten an accurate result.

My assessment from the sum total of your posts is that you are sick and tired of being sick and tired. With that in mind, yes, you do need to be very cautious of cross contamination and minor gluten if you want to get better.

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I agree with all of the others who posted - it doesn't matter what you call it, you still have to avoid gluten at all costs. My blood tests were all normal, as was my intestinal biopsy. My stool tests were positive for gluten, which I'd already figured was the case from a trial run of being gluten free. I did a "gluten challenge" prior to the blood tests & biopsy (which both were negative despite being back on it for a month prior), & I had such severe neurological symptoms from being back on gluten that I thought I was having a stroke.

True, but with an intolerance an occasional glutening isnt as detrimental as it might be with celiac..yes?

NO. You have antibodies forming whether it is under the label of gluten intolerance or celiac. Occasional glutening are just as damaging to both and take just as much time to recover from. The gluten intolerance label does NOT mean you have to be less strict.

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I recently had the endoscopy done and had to go on a gluten challenge the week before it was a horrible week. I was sick almost everyday. I had only been gluten-free a month prior. I too have had tons of tests done since I was in my teens and could never come up with a solution. I also believe in what the others say. Stick to gluten free if that is what is making you feel better.

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I agree with all of the others who posted - it doesn't matter what you call it, you still have to avoid gluten at all costs. My blood tests were all normal, as was my intestinal biopsy. My stool tests were positive for gluten, which I'd already figured was the case from a trial run of being gluten free. I did a "gluten challenge" prior to the blood tests & biopsy (which both were negative despite being back on it for a month prior), & I had such severe neurological symptoms from being back on gluten that I thought I was having a stroke.

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I agree with all of the others who posted - it doesn't matter what you call it, you still have to avoid gluten at all costs. My blood tests were all normal, as was my intestinal biopsy. My stool tests were positive for gluten, which I'd already figured was the case from a trial run of being gluten free. I did a "gluten challenge" prior to the blood tests & biopsy (which both were negative despite being back on it for a month prior), & I had such severe neurological symptoms from being back on gluten that I thought I was having a stroke.

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If you have been gluten free or gluten light for awhile, then your results might not be accurate.

I would die if I did a gluten challenge. I already ended up in ER 2 weeks ago from a gluten overload, which lead to my diagnosis. This last 2 weeks of healing have been so hard. No way will I go back and go through all of this again.

Stay gluten free and work on getting a wider variety of healthy foods into your diet is my humble opinion.

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Celiac disease is just gluten intolerance gone horribly wrong. Just because a gluten panel blood test comes up negative, doesn't mean you can eat gluten (despite what most doctors will tell you!). It just means you may not have full blown Celiac disease. And I agree, if you were "gluten light" before your tests, the results could definitely be skewed toward the negative.

If you do continue to eat gluten, even "gluten light" as you put it, further testing a year or few down the road will likely be positive. But by then the damage is done, and not all of it is reversible. Don't take the chance!

If you feel better being gluten free, even if you're not Celiac, continue gluten free.

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