We created this blog to tell the world about our beloved daughter Vitoria, who with acrania and anencephaly, lived with us for wonderful 9 months of pregnancy and exciting 2 ½ years of life outside the womb. May everyone know about her sweetness and tenderness. About her life, humanity and dignity. All the precious lessons learned with this little angel that God has sent us. It was a joy to have her with us. Vitoria still lives in our hearts and it will always be an honor to be her parents!

“But I am like an olive tree flourishing in the house of God; I trust in God's unfailing love for ever and ever”. Psalm 52:8

7/29/2012

Crying, laughter and peace

Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. John 14:27

How I miss to hold my little girl... to squeeze, to kiss, to feel her soft and perfumed hair, her cuddly cheeks and to see her naughty face of happiness to be loved!
But what a joy to know that she's okay, she has no more pain, she is free and I gave her freely into Jesus´ hands, with all my love, because I knew that, from now on, he would take care of her better than me... I knew a more fully love, a love that lets go the one you love, so that he can get well. If there is anything that can be worse than the pain of loss is the pain of seeing who we love suffer. I thank God so much because He was merciful with us and with my beloved child, because until the day before she left us she was well and happy. And when the suffering came, He picked her up and saved her.
How many beautiful memories, how much joy we lived! We were madly happy, irresponsibly crazy in love and caring for her. We surrendered ourselves without fear in this dive of no return that is being mother and father of a precious pearl of great value. This no one, ever, can take away from us, not even death. Just as nothing can separate us from the love of Christ, in Christ nothing can separate us from our beloved daughter.

It was only a long journey in which she could not take anything but her own soul and all the love she received from us. What a great party should have been made ​​in Heaven to receive her. As in her birth, crying and laughter go together now, sadness and joy become the same thing.

It is life for who stays, and eternal life for who goes.

look at our princess...

We love you so much little princess, I hope you're running and jumping and has a super powerful skate out there, where Jesus has taken you into his arms... lol

7 comments:

I think that would be wonderful. That would let the world know Victoria and know that babies with anencephaly don't always pass at birth. There is a possiblity you will get some quality time with your baby. Like its been said "Life is not measured by how many breaths you take, but the things that take your breath away.".I might not have wrote that correctly but you know what I'm saying. I have never me your family but I got to know your family, and my family fot to know about Victoria through me. I grrew to love her and I don't want you to think I'm a crazy person, all I have in my life really is my computer. I sit with it in frount of me all day. I have some health conditions that leave me unable to walk. so looking at my friends on my computer and finding out whats going on in their life brings me pleasure. I miss Victoria very much. I feel in love with her the first time I saw her and I would talk to my family all about her. I also wanted to ask you if I caould have your permission to hang some of her pictures up on my wall of friends and family past and present. Shes a beautiul little girl. I hope you wouldn't mind, but I wanted to ask first.

Hi Dawn! Thank you for your comment, for your kind words and caring for Vitoria! About the pictures, I would only ask you to not post her images publicly on online social networks, since I've already had problems with people sharing her photos in a disrespectful way.If you want to follow us on Facebook this is Vitoria's page https://www.facebook.com/amadavitoriadecristo where there are some pictures of her with watermarks for sharing. Thank you!

I just today found your blog and I wanted to let you know how much Vitoria has touched my heart and strengthened my faith in Christ Jesus. Thank you for sharing your all the pictures, video and writing about your beautiful daughter, and your fight for her dignity and for showing the value and worth of her life with your blog. I am so sorry for both of your loss. Even as the rejoicing of this precious girl in heaven helps the pain, I know you both must miss her so very much, and I am adding your family to my prayer list for comfort, joy and strength. God Bless your family.

You know... It's so sad to read about Vitoria's dead... I hope you'll be continue this blog. I'm sure this history for both of you (as best parents in this world) will never end...Maybe someday Vitoria's brother (or sister) will read this history and think of you with pride-because you both are best parents in the world! Hugs and kisses from Poland.

Love overcomes fear and makes us free to be happy. Vitoria taught us to love, to be free and find joy in small things. Through this precious child, we knew what love really is and what it is to be truly happy.

Missing our little girl!

A summary of our story...

Vitoria de Cristo was the most wonderful and precious gift we have received in this life. She was an immensely loved and special child, that brightened and rejoiced our lives during the 916 days she lived from her birth, with 38 weeks of gestational life. 2 and half years of an amazing miracle!

During her pregnancy she was diagnosed with acrania and was considered incompatible with extra uterine life. At birth she was diagnosed with anencephaly, diagnosis that came to be questioned over her growth due to her survival, all her reactions and expressions.

For us, names never made any difference. She has always been our victory and we always knew she was worthy of love simply by existing.

Little Princess!

Welcome!

I was in your hands even before my birth; you are my God from the time when I was in my mother's body. Psalm 22:10

The beginning of our story

On 12th week of pregnancy, we discovered our first and so wanted baby had a serious problem called acrania. There was no skull over her head, and brain structures would be damaged in contact with amniotic fluid, resulting in anencephaly. We were informed this kind of malformation is incompatible with life, and that our baby would certainly die right after birth. For this reason, we could ask legal permission to terminate pregnancy, according to Brazilian law.

Even though, we decided to believe that God could change this sentence and make the miracle of healing our baby, permitting her to survive after birth. We named her Vitoria de Cristo (Victory of Christ) and decided to love her the same way we have been loved by God: in a personal, individual and unconditional way.

And when she was born, we were surprised by a wonderful miracle, a precious life we have seen growing in front of our eyes, by God´s mercy.

I have said all these things to you so that in me you may have peace. In the world you have trouble: but take heart! I have overcome the world. Jesus, in John 16:33

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But we are able to overcome all these things and more through His love. For I am certain that not death, or life, or angels, or rulers, or things present, or things to come, or powers, or things on high, or things under the earth, or anything which is made, will be able to come between us and the love of God which is in Christ Jesus our Lord. Romans 8:37-39