Help Linnea

“There is a saying that it takes a whole village to raise a child. Now we need a whole village to save our Linnea”

Linnea, Kristoffer Nordströms daughter, is five and a half years and comes from Karlskrona in Sweden. Her world revolved up until recently around My Little Ponies, riding her bicycle and popcorn… lots of popcorn. She who has one best friend: her beloved big brother Kristian.
That was her world – until a few months ago when she suddenly and shockingly became afflicted, and got emergency surgery for a brain tumor.
After the operation, we hoped that the bad news would end. But now the family lives in the hospital and has been told that the tumor is an aggressive variety called DIPG (Diffuse Intrinsic Pontine Glioma). The short story is that there is a heart-breakingly minimal chance of survival using established treatments.

There is a possible treatment that we are now aiming for: one that means the tumor is treated through catheters implanted directly into the tumor. Studies and reports show that such a direct treatment gives Linnea the best chance of one day becoming healthy. The cost of treatment and the journeys are very high. Higher than the average person can pay for: £ 65.000 for the first operation and then £ 6.500 for treatments thereafter. In the current situation, it is unclear how many of these Linnea will need.