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ENCR-JRC Project: Incidence and Mortality in Europe

The ENCR-JRC project on cancer incidence and mortality in Europe was planned by the ENCR Steering Committee and JRC to create a standardized and comparable database for monitoring cancer incidence and mortality in the European Union and to provide regular information on the burden of cancer in Europe. These results will be included into a European Cancer Information System (ECIS), being developed in the next years.

Participation of the European Cancer Registries

Number of Cancer Registries applying to the ENCR-JRC data call and to the ENCR-JRC project

Geographic distribution of the Cancer Registries* submitting incidence data to the ENCR-JRC project, colour-coded by number of years.

*Only general (all cancer sites and all ages) Cancer Registries are visualised.

Outputs of the project

The output from the European cancer incidence and mortality database will include epidemiological statistics on cancer incidence and mortality, considering specific analysis by cancer site, sex, age group, calendar period, geographic area, and morphology groups.Data will be presented as aggregated data (tables and figures), including absolute numbers and rates (crude and age-specific and age-standardized) on incidence and mortality, also stratified where possible by cancer site, sex, age group, calendar period, geographic area, and morphology groups.

Outputs will be included in:a) A dedicated section on the ENCR websiteb) Factsheetsc) ENCR-JRC technical reports describing the burden of cancer in Europed) European Cancer atlasese) Peer-reviewed papers that will be written taking into account suggestions from the Cancer Registries, the ENCR SC and the JRC. Cancer Registries are motivated to promote, participate in the preparation of the papers or lead them.

Permission to the use of data

Cancer Registries willing to contribute data to the ENCR-JRC call need to provide permission for this protocol when submitting data, by selecting the specific project box in the Portal.

Required data files

Cancer Registries are required to submit their data files through the ENCR-JRC Portal (https://portal-encr.jrc.ec.europa.eu/). The following information should be submitted:- Incidence data as a list of individual cancer cases- Population data from the official estimates- Mortality data from official vital statistics

The description, format and type of data files and the corresponding variables are detailed in the '2015 ENCR-JRC call for data' protocol, available on the ENCR-JRC Portal and on the ENCR website (http://www.encr.eu/).After submission of the data, a request will be sent to the Cancer Registry to complete a questionnaire about the rules, codes, and procedures followed by the Cancer Registry. The answers to this questionnaire will provide valuable support to researchers in interpreting and best utilizing best the Cancer Registry data.

Deadline for data submission

Although the ENCR-JRC Portal will be continuously open for uploading and updating data, the deadline for submitting data for this call is 1 November 2015.