One of the reasons I want to go back to school next year is so that I can work for myself eventually. That’s not just because of my RA; I often prefer to have my independence anyway, but RA is a significant part of it. I want to be able to make my own schedule, and maybe even work from home so that, if I’m feeling rotten, I can easily take an afternoon nap or go for a walk.

I find working 9-5 surprisingly difficult some days. It can be totally exhausting to be away from home and sitting at a desk for so long. And though I was technically busier in school, at least I could still do my work from bed if I needed to!

You’re right – we do need more understanding, from friends, people we work with, and sometimes family. I hope World Arthritis Day can go some way toward reaching that goal.