IHF Chief Executive Barry Dempsey said: "The crucial issue of genetic diagnosis was not addressed in the policy review and therefore its recommendations should be urgently re-examined.

"We understand it would be possible to deal with this issue in the upcoming Human Tissue Bill in a way that would take account of both data protection requirements and the need to protect the blood samples of young Sudden Cardiac Death victims.

"But it appears no serious consideration has been given to the possibility of legislation."

"This extraordinary inaction in the face of what is potentially a life or death issue for thousands of people countrywide has to be challenged. Destruction of the cards presents a very real danger to a large group of people.

"The HSE must meet its duty of care to do what it can to protect them."