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Tuesday, May 18, 2010

Sparkly heart update #11

We woke up and got ready. As we were walking into the hospital, the nurse called to tell me they had just extubated her and she was crying!

She is on 11 meds right now and having a hive reaction to the IVIG so they added more benadryl. She's asking "I want hot tea, my heart hurts"... Sweet girl! She has drank and eaten ice chips and even smiled as you can see in her picture. She's been talking to me and even had a dream PJ stole her ice chips.

She's a fighter. Some people's heroes are over 6ft tall, wearing logos and costumes and use super powers. Mine is 45.75in tall and curly haired with a sparkly heart.

I love her so much. I can't even fathom how much more God could love her than I do, but he does.

More updates as the day goes on. No cell phones so I'll post when I sneak out.

About Me

Gabriella was diagnosed in April 2009 with a severe and irreparable congenital heart defect, Hypertrophic Cardiomyopathy. On September 25 2009, just before being listed for her new heart, she suffered a left MCA stroke, impairing her right arm abilities and taking away her speech. She was finally listed and received her heart after 97 days of waiting on May 17, 2010. Gabriellasheart.com has transitioned from a diary of our simple life to a log of Gabriella's status, and proves what a warrior she is.