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Saturday, March 28, 2009

Not an awful lot to report today. We continue to get ready for Tuesday's trip. Just a reminder we are leaving Tues, coming home Thursday evening. We will be home Friday and Saturday, then leave again Sunday. Surgery is Monday, no scheduled time yet.

I feel a little overwhelmed lately be the responsibility of sharing my family's life with everyone who reads our blog. Certainly we are in awe of the number of people who have read about Brady's story and we are humbled by how many are praying! I guess I just want everyone to know that in my imperfection I might now always write clearly, might now always explain things in the right way, and might not always do things the way other's think I should. I'm just a mom who is doing the absolute best she can right now. I said this when I first started writing and I'll say it again, I'm blogging to tell the story of my precious son Brady who has cancer. I've since realized that by sharing the story of this difficult journey, I'm also sharing our faith. It is my prayer that I'm bringing glory to God through this blog, despite my imperfections.

I appreciate more than words can say those of you who are willing to continue to stand by us, pray for us, and support us with encouragement as we travel this road. Brady is worth it all...

14 comments:

Thank you for sharing your story with all of us. I also have a blog where I write a lot about my son who has been really sick. It is wonderful to get so much support but some days I find myself worried about what and how and when to say this or that. But in the end...all we want to do is pray for your sweet little boy and your family.I hope you can feel the support.HugsAmy B

such a beautiful boy....we pray (my boys and i) for little brady every night.......we pray that he'll be strong and that God will guide the doctors..we pray for your family to have the strength to get through all this ...and we pray that he'll be cancer free someday soon....

i have to tell you that i'm not the most religious person in the world....but i do believe in God and reading your story, and the stories of others has lead me back.....and i'm so grateful....

Meg and Matt, We are not here to judge you through your blog. We are here to share and support you as you pour out your deepest feelings; whether happy or sad. There is no right or wrong. I so appreciate your candidness and know that you have helped others to strengthen their faith in Jesus. Rest in your faith that the Holy Spirit will send Graces to you to get your family whatever you needs. Go to NYC with conviction and faith that Brady will be healed. Your cup is overflowing with support and enough love to get you through anything that comes. Be careful not to cross any bridges until they come. God has the paved the path for you so do not go ahead of where he wants you to go. Take a deep breath and go in Peace knowing that God will never let you down.

As I was reading, the song "I still believe" came on, "Even when I can not see, I still believe." We pray for and with you as you begin the next stage. May God be with you, your family and the doctors. He created us and knew us before we were born. He will bring you strength, courage, grace and love. Be strong in Him. God Bless--Much love, Heather

Hold your head high, this is your child, and the words you feel God moving you to share w/us, you go girl! We pray the Lord will walk over the highways and byways and hold your plane in His hand carrying you over the mountains and valleys as He places you safely there and home again. And in your spiritual world, He will do the same but in the end you will be standing high on the mountain top! Brady you are so loved and adored, and i'm sure mommy will save all these so you will know just how much support you received while you were going through this struggle even though now you know life no differently than this. Jehovah Rapha our healer won't you breathe upon little Brady right now w/ your healing power? We pray that just as He cursed the fig tree and it withered and died b/c it bore no fruit in His time of need, so will this tumor shrivel and die. Amen

I haven't posted in awhile but know that we continue to lift you all up and pray for Brady's healing. Do not be ashamed to say and do as you feel best. God is your strength and everpresent hope. Do not let others put doubt or fear with in you. You will be near to our hearts and in our thouhts all the days ahead. Remember we are here for you in whatever way we can be. We love and miss you much!

This is Brady's journey, your journey! Write what you need to!! Each situation is unique, each child is different, everyone has their own "way" of doing or saying things. That is what makes this crazy world so great!! That we can all be a bit different and learn from one another!!

I for one would not or could never judge you for what you write, what decisions you make for Brady etc. I have never walked a step in your shoes and have no idea what you must be facing!!

Your words are powerful, and what you are dealing with is powerful! Keep doing what you are doing!!

Megan, Nobody expects you to be perfect! You are a true inspiration, just going through this and blogging everything about what is going on. May God bless you and your family and keep you safe during your trip to NYC.

About Me

I'm proud to be a wife and a full time mom to 4 amazing kids all born within 19 months of each other! In January 2009 I became a cancer mom when my son was diagnosed with Neuroblastoma, a form of pediatric cancer.

Please consider making a donation in honor of Brady to the Alex's Lemonade Stand Foundation. Your donation will assist families dealing with pediatric cancer and will help in the fight to find a cure!

What is Steps for Brady?

This blog started when Brady was diagnosed with Cerebral Palsy in December of 2008 because at the age of 20 months, he still wasn't walking. 3 weeks later during an MRI we learned that the diagnosis was not correct. Brady was diagnosed with Neuroblastoma, a rare pediatric cancer. He had a large tumor in his chest wall that extended into his spinal column, almost completely compressing his spinal cord. From that point on I have committed myself to telling Brady's story with the hope that he will continue making steps to living his life cancer free!

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A Charity Close to Our Heart

During Brady's stay in the PICU following his spine surgery, we were guests at the Ronald Mc Donald House at Strong Hospital. During our trip to Sloan for Brady's 2nd surgery, we were guest at the Ronald House NYC. We were amazed at the hospitality shown to us during our darkest hours. Their organziation is driven by donations and volunteers and we can never say enough about the positive experience we had while using that facility. Please visit http://www.rmhc.com/ to find out how you can help. The next time you visit Mc Donalds, think of our family and drop your change in the Ronald McDonald House Charity box!