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85 Visitor Messages

Timaru, I thought it was time to tell someone in the community, that my wife passed. 2 year struggle with Lung Cancer, rough to watch, especially the last breath and heartbeat. It'll be a month tomorrow since she left. I needed to tell someone, you're that person. mark

Hello, I am still alive...just been hibernating for a bit. I hope you had a very happy holiday and the new year is treating you well. My return trip to Europe is slowing taking shape. I am hoping to have more time in England this go round--and to venture out of London. I will let you know as we get the details more firmed up.

Thanks for the kind words. I usually come here everyday and read but at times just don't have much to write. Or just don't feel like writing. I think at times I get depressed and don't feel like doing anything. What kind of wine are you drinking there?

Howdy, I know, but if you were bothered by it, I would never use the word in your presence. :-)
It has been sunny lately, I think most of the UK has had decent weather lately. What's it been like where you are?
I love the sun and heat, I can feel my low winter mood lifting.

Sorry dropped off the radar for a bit. Will be back on facebook sometime. How are you doing? I bought some British pounds yesterday. I am not pleased. They are too wide too fit in my puny canadian wallet ( which was probably made in china)

Thanks, Timaru - but I'm in much too good a mood to view anything starring Tony Hayward. I'm glad he got his life back and got the hell out of MY gulf. Me, I'm gonna go out on the back porch and smoke one of the lovely cigars that just arrived via FedEX. Today's weather is an 11 on a scale of 1 to 10.

the reason I contacted you was several weeks ago my brother and I were searching for chat rooms to find info. I stumbled upon this website and found the conversation about condom caths. My brother had his first contact in years with a support group last month at the local hospital. We plan to attend when we can but there was only one man in the group and he is still able to walk some.

hi, my brother is 48 and left his wife last nov. he stayed with me for a few months and now lives next door with his adult daughter and fam. we share in his care. She works full time. We are still learning to care for my brother. He has had ms for over 20 years. in a motorized wheelchair, has some movement in his arms, very little in legs. He wears a condom cath (has accidents about one per week) He just came out of an abusive 11 year marriage, he has pretty much been in bed for 2 years, now he is in his chair daily. My question is about bms. are most planned and how often. My brothers memory is getting better but he was on alot of medication. He is doing so much better now that he is with his family that love him.

The ice wine was Canadian. I had never heard of ice wine before. I would venture a guess maybe the German stuff is better than Canadian but I don't know. Who knew a bunch of frozen grapes could taste so good, or be so stupidly expensive!

Oh...Interesting reading. I think I might still go for it, for peace of mind. I'm so worried of getting any flu, as the one time I did have seasonal flu about 17 years ago - pre-sci - it was quite bad on my chest. Hmmm.
I had to cancel my second appointment on the 6th, due to the bloody snow. I'm not going to make another appointment now until the weather improves - whenever the heck that is.

I got your card - thank you so much! Unfortunately, I lost your address and now I can't send you a card in time for Xmas. I'm sorry.
In other news, I'm having the swine flu jab next Wednesday. I'll let you know how it goes!
Do you have much snow where you are? There's not a lot here, but the cold is unreal. It said on the weather forecast it coukd be the coldest night of the year so far, and it seems to be true.

Despite your assurances, I am still worried I might have be party of bird murder by removing the nest from the engine. However I do need to go places lol. So there really was no viable option. Hope you are doing well. We are currently buried under 3 feet of snow. Thoughts of moving far away are stiring again..

Lol @ "pig fever".
How long will you have to wait to demo the Storm 4? I hope it's not ages, but it seems most things to do with wheelchairs take their time.
Things are very slowly getting back to normal here. But there's still a way to go yet.
I don't know what it's like where you live, but here it's very obviously moving into cold weather time. Brrr.

Hi. In Tofino now. Had a longer than planned for delay in Vancouver getting my collar bone re-set. Long story but its doing better now. My dad is out deep sea fishing today. We will see what he brings back from the slaugher (just kidding...he was very happy to go, I guess I sort of understand the allure of fishing, the solitide and all that). Hope you are having a nice summer.

2 years to replace a cushion?! Revolting, but not massively amazing, I suppose. I don't blame you for bypassing wheelchair services if you can. I know I waited ages to get to see them, but I was happy I was awarded about £900 (maybe a bit more, I can't remember) to put towards buying my own manual chair (I gather this kind of award is fairly generous for w/chair services).

Ah, I remember seeing that picture before. Lol "tank".
Any idea when you might have your new powerchair?

Glad you are ok, Timaru. Oh my, I can't imagine having the same chair for 20 years! I bet it's totally knackered, isn't it? I had a look at the chair you are thinking of - looks good. Do you deal with Wheelchair Services?

I got a Pride Quantum 600 chair. I'm really happy with it, but it is still early days. Being able to go to places I couldn't in my manual is wonderful. Like, even just going up a few roads to post a letter today felt great (I just couldn't do it in my manual).

yes I have been a busy bee lately lol. But you know I am naturally lazy at heart, so I suspect the whirlwind of activity will die down soon. Glad your trip went well I think somebody you will need to come try the rivers around here.

I will have to get some tips from you on google earth. I tried using it for the first time on the trip, in conjunction with my fancy new GPS unit (which I could barely even figure out how to turn on--sometimes fancy is not the best thing for something like this). Anyways I didn't get very far with google earth.

I am glad you liked the pictures so far. I will be posting more once I get more energy. As for Canada being more accessible than there...well here is a caveat: I was able to go to the top of that canyon and look down on the waterfall no problem. Later that night we went into the Jasper townsite and I couldn't get into the Starbucks because it had 2 steps up to the door. So still a ways to go in many ways...

I should mention that I am so enamoured with that site that I might start overusing phrases I have learned there. If you start seeing me writing on my blog about drinking plonk and wearing trackie dacks, you will know...

There, sent suggestion to Steven. Volunteered your services, too. More cooks improve the stew on projects like this, we do it at u2fp constantly. I just wrote an advocate's toolkit for u2fp, added tons of templates and scripts for calling/writing/visiting legislators, writing letters to the editor. We've found that people, given a template, will participate. Some just lack security in ther writing skills, or get intimidated by a blank screen. (Clearly not a problem of mine LOL.)

I think I'll ask Steven if I can write one and they'd make it a Sticky. Need to do it before summer travel season gets here. And I need cspanos to write up that awesome island he stayed on, where he was sitting on a deck and looking at the Great Barrier Reef.

Flying to Australia...There's a Great Barrier, if you ask me. I keep telling myself "If Dogger could do it, you can too." And Dogger made that flight solo. But he was a great deal tougher than me. That Barrier Reef is taunting me. "Here I am, but you've never seen me, nah nah nah nah nah. And you call yourself a scuba diver..."

I think CC should have a rule. No posting of travel photos w/out a trip report. I could write a template, so the writing-averse could just fill in the blanks. What do you think? When ppl don't report, we don't learn from their experiences...

Sorry I meant to reply sooner. And to post on the blog. Max/Maxine is still swimming around and since I already did 2 courses of antibiotics and there has been no change for the worse, I am guessing that is about all I can do. It is very possible all the damage that happened was due to being pregnant, I think because except for the missing eye and a few white spots/sore on the body, he/she seems fine. Not sure if I should put it back into a tank with other fish. But it went from like a 100 gallon tank to 10 and hates it. I am humanizing the fish again, aren't I? lol. Hope you have a good weekend