Monday, March 19, 2007

totally peed in my shorts while 'standing' in bathroom to pee. only my sister was here. that's not modesty, that taboo. my talk page:

you can help me using THIS PLAN:all this in bathroomput on plastic glovesgive me another towelremove shoes, socksi shove towel in crotchyou pull off shorts,p ut onn socks not shoesthen pull new shorts up to kneesthen you leave and i pull u p shorts

MOP AND BUCKET -- USE SHOWER DRAIN

don't mop 'up' - - just evict

bucket to s pread water

...then, the next day, with my sister again caring for me, i made a point to go pee early and often. that worked. but because they worried that the saliva-reduction drug would constipate me, they put me on Mirilax. when my sainted wife came home i again 'stood' to pee, and made a big incontinent poop on the floor. my voluntary muscles must be too weak to stop it. guess who cleaned it up.

it gets worse. two days later, around 5 pm, i was again peeing, and again could not hold back the poop. i think it was the miralax again -- though my final dose was monday. i hope i'm not incontinent now. (good news: i pooped in the toilet yesterday.) my heroic wife dealt with it, AGAIN. this is so unfair to her.

then that night at bedtime she had to call 911 because i could not get air.

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I am a husband and father of two young children. On January 13, 2004, at 41 years old, I was diagnosed with a 100-percent fatal, presently incurable disorder called ALS. If you know me in real life, and I didn't personally invite you to read this blog, please send me an email about reading this blog.