When a parent learns that their baby or young child has a hearing loss, they are often left feeling alone and unsure what to do. We've been there and done that with one Deaf child already, and we've just started the journey again with our newborn son. In addition, we learned our baby also has NEHI, a rare form of childhood lung disease. We hope that sharing our experiences will help inspire and encourage other parents of children with hearing loss or who may also have NEHI.

Friday, April 30, 2010

Only the Happiest Updates to Share

I know it's been way too long since I've updated. Things have been nutty with selling our house, buying a new one, and all the craziness that comes with just living in our house. I promise things are bound to slow down soon, and I'll be better about posting more often.

I did want to be sure to stop by and leave some AMAZING NEWS on Liam. HE IS TOTALLY OFF OXYGEN!!! Don't adjust your screen or check to make sure no one dropped something in your drink. You read that correctly. Liam is free of his tether. And he is doing amazingly well!!!!! He does still have one more test to take at home to check his sleeping oxygen levels, but that's about it. We are so excited for him.

He's also learning to leave his hearing aids alone for longer and longer stretches of time. He has found his voice, and loves to use it. Hopefully he'll eventually get to a point where he can use his voice to actually form words. One can hope, right?