tag:blogger.com,1999:blog-22576999.post6661618096868042500..comments2015-03-03T18:08:23.147-05:00Comments on Learning to Live With ME/CFS: The Boring Sameness of Crash DaysSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-22576999.post-45292584162095589072012-01-30T15:46:01.652-05:002012-01-30T15:46:01.652-05:00Hi Sue,
I wanted to introduce myself since I&#39;...Hi Sue,<br /><br />I wanted to introduce myself since I&#39;m now following your blog. I&#39;m somewhat new to ME/CFS, so I&#39;ve been trying to learn from those who came before me. So far, I check in with your blog and one other. You have a clear, concise writing style, which I appreciate. <br /><br />I&#39;ve also started my own blog, and I invite you to visit it sometime. http://quixoticmeblog.blogspot.com/<br /><br />Keep the updates coming.<br /><br />PatrickPatrick W. Calvinhttp://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-33938545200898209702012-01-30T08:50:58.583-05:002012-01-30T08:50:58.583-05:00I&#39;m with you, Baffled - getting out in the fre...I&#39;m with you, Baffled - getting out in the fresh air and sunshine always helps! And there is nothing like being near the ocean - the smell of the salt air, the sound of the waves - it is instantly calming and peaceful. You are lucky to live close enough to the shore to visit like that!<br /><br />Hope things are looking up for you this week.<br /><br />SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-79626086321308007312012-01-29T23:39:08.686-05:002012-01-29T23:39:08.686-05:00This has been a bad month for me. I was going bat...This has been a bad month for me. I was going batty this week. Hubs finally took me out for a car ride today. The sun and warm air were nice. Being in the car instead of the house was nice. My fav thing to do is go to a beach and sit in the car with the windows down so I can listen to the surf. Just being out of the house is a treat. It is particularly difficult during the winter months when the backyard is off limits.Baffledhttp://www.blogger.com/profile/16763003920036754454noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-4887845915073432482012-01-29T22:16:31.553-05:002012-01-29T22:16:31.553-05:00Good question, and I wish I had some answers. I am...Good question, and I wish I had some answers. I am in the middle of a &quot;brain crash&quot; at the moment, which means I cant tolerate TV, or audio tapes, or reading, phone is limited to a couple of minutes, (in person visits likewise), and Internet must be rationed into small bites. In my experience, these brain crashes last a few weeks.<br /><br />I am somewhere between bedbound and housebound, so there isn&#39;t much physical I can do either. It&#39;s very boring and incredibly isolating.<br /><br />So to all of you who can at least watch TV, count your blessings!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-38163309725293637472012-01-26T20:24:06.676-05:002012-01-26T20:24:06.676-05:00Char -
So sorry to hear your daughters have been...Char - <br /><br />So sorry to hear your daughters have been going through such a difficult period.<br /><br />Have you considered joining our Parents group on Facebook? It&#39;s a wonderfully warm &amp; supportive group of parents whose kids/teens/young adults have CFS and related illnesses who completely understand what you&#39;re going through.<br /><br />If you want to join, here is the link:<br /><br />http://www.facebook.com/groups/164665786958252/<br /><br />SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-26972463948894532192012-01-26T20:08:20.533-05:002012-01-26T20:08:20.533-05:00Sue, I can so relate to your post. Both my teenag...Sue, I can so relate to your post. Both my teenage girls have been crashed since November and I have run out of tricks to lighten the boredom mostly because they have no energy to do creative things. We watch for birds at the feeder, watch u-tube, listen to music ( when volume isn&#39;t a problem), dream of vacations we&#39;ll someday take. Good luck!Charhttp://www.blogger.com/profile/09786274543942041822noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-73270132280565817442012-01-26T12:19:17.236-05:002012-01-26T12:19:17.236-05:00Oh Sue, I think that&#39;s the best question ever....Oh Sue, I think that&#39;s the best question ever. I wish I had an answer. Sometimes I do little things like read a fav. book, watch a movie (stuff you mention)...but when the crash days come every day for a while, it gets hard.<br /><br />As for the fevers, I get them quite frequently when I&#39;m crashed. Low grade between 99.5 and 100. It&#39;s been part of the M.E. since the start.upnorthhttp://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-70219382146225154902012-01-25T20:53:58.197-05:002012-01-25T20:53:58.197-05:00Oh, gosh, Sue, sorry to hear you and Jamie are doi...Oh, gosh, Sue, sorry to hear you and Jamie are doing poorly. It must be so hard to watch him struggle too. My temp. is normally 97.5 too. So a fever for me is when it goes higher than that!<br />Hope things improve quickly for you both. Hope you enjoyed your couch time when Jamie was downstairs :)Reneehttp://www.blogger.com/profile/07089685282700680525noreply@blogger.com