Resources

Reports

National Health and Medical Research
Biobanks Information Paper
2010
The National Health and Medical Research Council (NHMRC) has developed this Biobanks Information Paper to provide information relevant to the establishment, management and governance of biobanks in Australia. http://www.nhmrc.gov.au/guidelines/publications/e110

Australian Law Reform Commission ReportEssentially Yours: The Protection of Human Genetic Information in Australia (ALRC Report 96)
2003
The two-volume, 1200 page report makes 144 recommendations about how Australia should deal with the ethical, legal and social implications of the New Genetics.http://www.alrc.gov.au/publications/report-96

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This site compiles the latest research and academic journals as part of an NHMRC funded study, 'Maximizing the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement'.

This study is being conducted by the Centre for Values, Ethics and the Law in Medicine and the Centre for Health, Governance, Law and Ethics based at the University of Sydney, Australia. The Network for Bodies Organs and Tissues is also contributing.

A substantial portion of the material provided in the database on this website was collected for a project on personalized medicine at the Centre for Law and Genetics at the University of Tasmania. That project is funded by Australian Research Council Discovery Grant DP11010069.