Jan 16, 2013
(Started Aug 24, 2011)

Nov 26, 2012
(Started Aug 24, 2011)

Effectiveness

Major
(for amyotrophic lateral sclerosis)

Side effects

None

Adherence

Always

Burden

Not at all hard to take

Dosage:
300 mg
Daily

Advice & Tips:
Been rolled over to open-label for DEX. We hope to have a read-out soon (Dec/Jan) on results. I either have a really slow onset or this drug is really working... maybe both. While I've lost much strength in my right hand, all else is good for the last 2 years. My only negative was an early spike in Liver enzimines...

Cost:
< $25 monthly

0helpful marks

Oct 11, 2012
(Started Jun 16, 2011)

Effectiveness

Can’t tell
(for Participate in clinical trial)

Side effects

None

Adherence

Always

Burden

A little hard to take

Dosage:
300 mg
Daily

Advice & Tips:
This was a drug trial, I did'nt know if I had the placibo or the real drug. October 11,2012 the trial ended. They are giving me the real drug while they are analyzing the trial data.

0helpful marks

Oct 10, 2012
(Started Sep 10, 2011)

Effectiveness

Can’t tell
(for Participate in clinical trial)

Effectiveness

Can’t tell
(for amyotrophic lateral sclerosis)

Side effects

None

Adherence

Always

Burden

Not at all hard to take

Dosage:
2
Daily

0helpful marks

Mar 26, 2012
(Started Jul 05, 2011)

Effectiveness

Can’t tell
(for amyotrophic lateral sclerosis)

Side effects

None

Adherence

Always

Burden

Not at all hard to take

Dosage:
300 mg
Daily

Cost:
< $25 monthly

Jul 20, 2011
(Started Jul 05, 2011)

Effectiveness

Can’t tell
(for amyotrophic lateral sclerosis)

Side effects

None

Adherence

Always

Burden

Not at all hard to take

Dosage:
300 mg
Daily

Cost:
< $25 monthly

5helpful marks

Jan 31, 2012
(Started Sep 09, 2011)

Effectiveness

None
(for Participate in clinical trial)

Side effects

None

Adherence

Always

Burden

A little hard to take

Dosage:
300 mg
Daily

Cost:
$100-199 monthly

1helpful mark

Sep 7, 2011
(Started Jun 14, 2011)

Effectiveness

None
(for amyotrophic lateral sclerosis)

Side effects

Mild
(sleep problems)

Adherence

Always

Burden

Not at all hard to take

Dosage:
2
Daily

Advice & Tips:
Struggling to believe this is doing anything for me in terms of slowing progression, if anything its as though its sped up! maybe i'm on the dummy drug.

Cost:
< $25 monthly

Side effects:
sleep problems

Aug 23, 2011
(Started Jun 14, 2011)

Effectiveness

Can’t tell
(for amyotrophic lateral sclerosis)

Side effects

Mild
(sleep problems)

Adherence

Always

Burden

Not at all hard to take

Dosage:
2
Daily

Cost:
< $25 monthly

Side effects:
sleep problems

Aug 9, 2011
(Started Jun 14, 2011)

Effectiveness

Can’t tell
(for amyotrophic lateral sclerosis)

Side effects

Mild
(sleep problems)

Adherence

Always

Burden

Not at all hard to take

Dosage:
2
Daily

Advice & Tips:
This may be a result of Dex or may not but since the i started 2 months ago my breath test improved from 86 to 93! either way it gave me a lift.

Cost:
< $25 monthly

Side effects:
sleep problems

Jun 14, 2011
(Started Jun 14, 2011)

Effectiveness

Can’t tell
(for amyotrophic lateral sclerosis)

Side effects

Mild

Adherence

Always

Burden

Not at all hard to take

Dosage:
2
Daily

Advice & Tips:
The only side effects i have noticed is a change in my sleeping and slightly more indegestion