Alstrom Syndrome UK

Charity information

Alstrom Syndrome UK

Alstrom Syndrome UK (ASUK) was formed in 1998 after the Founder and Chief Executive Mrs Kay Parkinson's children were diagnosed aged 15 and 18. She was told it was extremely rare and only 12 other patients were then known to have the syndrome.

Alstrom Syndrome in both children and adults can often go undiagnosed. Alstrom Syndrome is now creating much greater awareness and spearheading important research.