RSS Research & Education Fund

RSS Research & Education Fund

In August 2012, The MAGIC Foundation announced the establishment of The RSS/SGA Research and Education Fund, dedicated to making real differences in the lives of those with Russell-Silver Syndrome and/or born small-for-gestational-age. The Fund was launched in the fall of 2012 with funds raised in honor of Madeleine D. Harbison, M.D., the woman who, more than any other person, has been instrumental in the advancement of RSS/SGA research and education here in the United States.

Based on feedback from MAGIC members, the Fund set out with an initial lengthy list of proposed goals for the two-year period covering August 2012-July 2014. We encourage you to read through the list of proposed goals/projects and let us know which ones you think are most important.

Change for the Russell-Silver Syndrome/Small-for-Gestational-Age community has always occurred when we have worked together to make things happen … our RSS/SGA Guidebook was published, the MAGIC convention expanded, we’ve worked to produce new research, and we’ve fought for our children’s rights in our state and federal legislature, just to name a few accomplishments.

Imagine new research investigating topics such as puberty issues, fertility/reproduction, scoliosis, learning abilities, ADD/ADHD, etc. … imagine new educational tools for schools, parents, coaches … imagine the continued availability of the Guidebook to new families.

We have to continue to work together to ensure that all RSS/SGA individuals have access to the most up-to-date medical information and treatment options available, regardless of their age, where they live or the size of their household income. This is all of our responsibility – change will only occur if we work together.

We set a budget of just $100,000 to cover the first two years of the Fund’s projects; we raised almost $67,000 in the first year and are very proud of our families. We are a lean, mean fighting machine – we do not need millions of dollars to accomplish a lot. But we have to keep fundraising. Can you help?

The Independent Charities Seal of Excellence is awarded to Charities of America that have, upon rigorous independent review, been able to certify, on an annual basis that they meet the highest standards of public accountability, program effectiveness, and cost effectiveness.

These standards include those required by the US Government for inclusion in the Combined Federal Campaign, probably the most exclusive fund drive in the world.

Of the 1,000,000 charities operating in the United States today, it is estimated that fewer than 50,000, or 5 percent, meet or exceed these standards, and, of those, fewer than 2,000 have been awarded this Seal. MAGIC's CFC #10388.

Joining MAGIC Foundation has incredible member benefits including a quarterly newsletter, discounts on events, and best of all you are supporting the world's leading advocacy and information group help thousands of families.

The MagicFoundation

Please remember when contacting us, we are not medical professionals. We are parents of affected children. We will try to match you with the parent whose child most closely resembles you/your questions.