With highly valued research subject-the longitudal studies-what line seperates “thereputic leisioning ” and “mutilation”?
How do you classify such things-secondary benefince or social justice?
When the objective science breaks down could we turn toward an objective system that places a research subject in with a voice?

“While there is no ‘one size fits all’ route for JLA priority setting, the following are integral features of all JLA Priority Setting Partnerships:

* the principle of patients, carers and clinicians working together
* methodological transparency
* the declaration of interests
* working with the UK Database of Uncertainties about the Effects of Treatments (UK DUETs)”http://www.jlaguidebook.org/jla-guidebook.asp?val=5

You see the answer to Beecher’s question could be multiple choice and the burden of research could have been shouldered by all involved-not by just the patients.

Or patients creating more patients for the sole purpose of material gain.