2017 CFC International Conference

Global CFC International Registry

The CFC Registry is a centralized resource that is vital to helping researchers learn more about CFC syndrome, accelerating the development of new research and treatments, identifying issues that need research, and improving the care of all those with CFC syndrome.Learn More

CFC International is a non-profit organization
founded in 1999 by parents of children with CFC
syndrome. We are the leading International organization
dedicated to provide support for persons and families
dealing with CFC syndrome.

Every other year CFC International holds a biennial conference to gather families, care providers, therapists, teachers, scientists, researchers and doctors under one roof to learn and discuss the latest information on CFC syndrome.

CFC International relies on the support of individuals, corporations and foundations to fund its programs and research initiatives. Your tax deductible contribution is incredibly meaningful to the patient community and our organization supporting them.

CARING, FACILITATING & CONNECTING

What is CFC syndrome?

Cardiofaciocutaneous syndrome is a rare genetic condition that typically affects the heart (cardio-), facial features (facio-) and skin (cutaneous). It is seen with equal frequency in males and females and across all ethnic groups.

Donate Today

CFC International relies on the support of individuals, corporations and foundations to fund its programs and research initiatives. Your tax deductible contribution is incredibly meaningful to the patient community and our organization supporting them.Donate Now!