Skin, nails and hair all improved -- and I had pretty good skin and great hair before I was gluten free - my nails had always peeled and broke easily -- then a few months in my gums started improving - always had gum issues even with very good dental hygiene. I had some improvement with digestion for the first six months -- then had other issues pop up...but I was 43 when I went gluten-free.

You are 17 so you will likely see much more improvement quickly. My son was 15 when he went gluten-free -- digestive issues, bloating, flu type symptoms all disappeared -- his reflux remains problematic, but has improved over the past 4 years and he just grew an inch this past six months --- at 19!

Migraines and constant D were the first things to go away for me. Both were gone within a couple weeks. I still had issues with occasional D until I discovered that soy was my enemy also. The next to go away was my periodic episodes of depression. I know only get hit with that when glutened and it lifts after one day. My neuro issues took much longer to resolve as did my arthritis.

The time to heal can vary from person to person as can the body systems impacted. Many of us also go through withdrawl. That can be tough for many but will pass.

I hope you are feeling much better soon. Eat as much whole food as you can, stay away from restaurants and other people's cooking and do learn as much as you can about cross contamination to help speed the process.

Share this post

Link to post

Share on other sites

Within a few days, my reflux and gas disappeared. Over a few weeks, depressiona and anxiety started to life. The mental fog also went away within a few weeks. I'm two months into my gluten-free lifestyle and I've noticed I no longer have issues with neuropathy or even knee pain. Crossing my fingers that with time maybe my PVCs will even go away...oh and I'm starting to loose weight without much effort. I was a Celiac that couldn't loose weight no matter how much I tried. Now after diagnosis, it's coming off.

Within a few days, my reflux and gas disappeared. Over a few weeks, depressiona and anxiety started to life. The mental fog also went away within a few weeks. I'm two months into my gluten-free lifestyle and I've noticed I no longer have issues with neuropathy or even knee pain. Crossing my fingers that with time maybe my PVCs will even go away...oh and I'm starting to loose weight without much effort. I was a Celiac that couldn't loose weight no matter how much I tried. Now after diagnosis, it's coming off.

Share this post

Link to post

Share on other sites

Bloating went away as soon as I got on b12 shots and the majority of stomach and digestive upsets / pain etc went away with the gluten. Still ongoing other problems some years later because gluten free was too little too late for me. But I'm getting there. I only wish I had of know there was such a thing as Celiac or gluten problems when I was 17 because I was already sick then and didn't stop eating it for another 20 years. I think you'll come out of it ok having got on it early

Share on other sites

im fairly new at being 10 wks gluten-free but by week 4, my itchy scalp rash had just about cleared up.

by wk 6 my fluctuating eyesight and dry eyes had improved dramatically (i had eye surgery 3 times, 4 yrs ago and last December my optician had made me an appointment for begin of Feb to fit me with glasses! but on the appointment, my vision was back to 20/20 !... i was taking flaxseed daily so that may have helped)

Share this post

Link to post

Share on other sites

My first symptoms to go were chronic D, nausea, pain after eating, and bloating. I lost a pants size in the first month just from bloat. Migraines took a little longer to improve, but did improve (and then came back...yuck). I had a rash on my hand that cleared up after about 2 months gluten-free (pretty sure it is just eczema and not DH as it was not blistery).

I didn't expect ANY of the digestive stuff as I originally quit eating gluten to see if it would help my headaches. The drastic GI response is one of the things that prompted my celiac dx when I finally went to see GI.

Share this post

Link to post

Share on other sites

Within a week my skin cleared up from what I'd call regular acne. Bloating and abdominal pain took, well, a few months must have been. I rarely get hot/cold spells or feel like I'm getting the flu now.

But I still have very little energy, moderate excersise drains me, my neuropathy comes and goes (always worse the day or so after I excersise at all, and not just in my limbs where it makes sense, around my lips I get that nerve tingling), I've had a missed period, and my mood isn't better. Still have ups and downs, although random rages have improved, but I'm still depressed.

Share this post

Link to post

Share on other sites

First thing to go, anxiety attacks and depression. Energy levels too started improving in the first week. Tension headaches disappeared too. Blurred vision too. Reflux in the first weeks. All of these come back periodically, however, either because I ate gluten (involuntarily!) or because I ate something else which bothered my very sensitive bowels. (say: alcohol, coffee, or simply too much food. I'm almost four months gluten-free at this point, not nearly enough to see a real difference, says my GI doctor, at my age: I'm 47).

GI symptoms tend to come and go. On good days I have no bloating, no C and no D. Energy levels are much better (I get done a wide amount of stuff every day) but I can have bad or very bad days when I can't function at all and where all my GI symptoms come back. Dry, itchy eyes are still with me at night.

I still have issues with my period (it always was very regular and in the last months of my glutened life had started to come early or late by sometimes a week or too; but that might be related also to my age).

Share this post

Link to post

Share on other sites

They first to leave were my horrible stomach cramps and the rest of the ibs like symptoms. Also abt that time my reflux was gone. A couple of weeks later as my life became normal again the agitation finally disappeared.

Share this post

Link to post

Share on other sites

Glad that you are feeling better now on a gluten free diet! The first symptom that went away was my chest pain when I went gluten free. It went away after 2 days of being gluten free and hasn't been back.

Share this post

Link to post

Share on other sites

I have been gluten free for only a week. However, I already feel so much better!! I can actually eat without getting a terrible stomach ache afterwards. My head seems clearer, concentration is getting better. Chest pains seem to be gone. A coworker told me yesterday that I am losing the bloated look, which I saw, but thought maybe I was imagining it. I have cheek bones again. Lost 3 lbs in the first week, but find that clothes already fit better. My energy level still isn't where I want it, but that can also be from the iron and B12 deficiencies. Once I get more energy I plan on getting more exercise, which I know will help tremendously! Thanks again for this forum!! I was out with my 14yo nephew who was hungry and we weren't close to home, so we went to a 99 restaurant, and I ordered a gluten free burger. I didn't think I had to explain how sick I could get from cross contamination, but, as delicious as the meal was, I did get the stomach pains. I suspect they weren't as careful as they should have been in the kitchen. Next time, I will have my card to show exactly what I need. Lesson learned.

Top Posters +

Upcoming Events

NEW ORLEANS GOURMET
GLUTEN-FREE mini GETAWAY
March 24 ~ 27, 2019
We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun. We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.
Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.
Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.
This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before. Check out our website for the complete itinerary and cost.
Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.
If you have any questions just give us a call at 410-939-3218.
Bob & Ruth
info@bobandruths.com
(410) 939-3218

Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.

The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.

The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.

The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com

Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts.
Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
ABOUT THE NOURISHED FESTIVALS
Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com

Forum Statistics

Forum Discussions

Well, TDZ, I certainly hope that your husband is able to get some Dapsone to quickly ameliorate his DH (and that it does not have too many adverse effects on him, either).
It sounds like your husband's DH is worse than mine ever was, so I can only imagine the ongoing agony that he's been dealing with. To call DH "just an itch" would be like calling am amputation "just a scratch", i.e., probably nobody who has not experienced it can imagine how frustrating, distracting, maddening and depre

Yeah, I think the only reason to bother with trying to get a diagnosis is if it's needed in order to get the Dapsone, which would be a lifesaver for him in stopping or helping the itching while he gets his diet more in order. He's had continuous rash and lesions and blisters over large to larger parts of his body for a couple of years, and the itching is driving him insane.
We do have an appointment with his PCP this afternoon, to try and talk him into trying the Dapsone -- seems it would

Alaskaguy,
Sorry to interrupt, but I wanted to put in my two cents.
I prefer the Autoimmune Protocol diet because it helps heal the gut so quickly. It's a bit more strict than the Fasano diet but the results are striking.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/#!po=43.7500
People with Celiac and DH have a problem with leaky guts. The AIP diet helps heal this problem.
https://www.ncbi.nlm.nih.gov/pubmed/3934051
Nightshade vegetables are not allowed