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All content of this website including text, images, graphics, sound files, and their arrangement, belongs to Shire and is protected by international copyright laws. All other intellectual property rights are reserved. The content may not be copied
for commercial use or distribution, nor may these objects be downloaded, modified, or posted to other sites.

This site is intended solely for US residents and is governed solely by US laws and government regulations. Please see our privacy notice for more information. While Shire US Inc. makes reasonable efforts to include accurate, up-to-date information on the site, Shire US Inc. makes no warranties or representations as to its accuracy. Shire US Inc. assumes no liability for any errors or omissions in the content of the site.

Management options for SBS can be varied and complex. There are many factors that make your situation unique, and the location and amount of bowel remaining after surgery could impact your individual SBS treatment plan.

Everyone’s healthcare needs are different, so healthcare teams are not typically one and the same. That’s why it’s important to talk to your doctor about what other healthcare professionals you should work with. Many SBS healthcare teams consist of a primary care doctor, surgeon, registered dietitian and home healthcare providers. Together, this group of people can help determine which healthcare strategies are best for you.

In addition to healthcare professionals, you may also have people in your life who emotionally and/or physically support you. We generally call these people caregivers. These people can provide both emotional and physical support and make up an important part of your SBS healthcare team.

“IT'S VERY IMPORTANT TO SPEAK OPENLY WITH YOUR DOCTORS AND YOUR HEALTHCARE TEAM, BECAUSE THEY CAN'T READ YOUR MIND. THEY DON'T KNOW WHAT'S WRONG UNLESS YOU TELL THEM. TRY TELLING THEM SPECIFICALLY WHAT'S WRONG AND HOW YOU FEEL, OTHERWISE THEY DON'T KNOW.”

- NORMA, SBS Patient

SBS Management Goals

Some people with SBS may not be able to get the necessary nutrition or fluid they need from their diets, so the primary healthcare goal is often to ensure adequate nutrition and fluid for the body to function correctly.

Most healthcare teams will also focus on treating and preventing complications associated with SBS and/or the unpleasant symptoms of the syndrome.

Whatever your situation, it’s important to discuss your health and lifestyle priorities with all members of your SBS healthcare team to create a unified plan of action.

Complete and print the SBS Patient History Tracker and take it to your next doctor’s appointment to address additional aspects of your treatment and goals.

To learn more about the goals of SBS management, talk to your doctor and sign up to receive a copy of A Patient’s Guide to Managing a Short Bowel by Carol Rees Parrish, MS, RD.

Potential Members of Your Healthcare Team

Common Management Goals

Colorectal surgeon

Gastroenterologist, or GI

Nurse practitioner

Physician assistant

Primary care physician

Registered dietitian

Registered nurse

Registered pharmacist

Caregivers

Other

Common Management Goals

Ensure adequate nutrition and fluid intake

Treat and prevent complications

Asking for help isn’t always easy. But it can be helpful to speak openly with your doctor and healthcare team about all aspects of your treatment plan. Bring a completed SBS Patient History Tracker to your next appointment to address your situation.

Sign up for EDUCATIONAL EMAILS and a complimentary book, A Patient's Guide to Managing a Short Bowel.

All content of this website including text, images, graphics, sound files, and their arrangement, belongs to Shire and is protected by international copyright laws. All other intellectual property rights are reserved. The content may not be copied
for commercial use or distribution, nor may these objects be downloaded, modified, or posted to other sites.

This site is intended solely for US residents and is governed solely by US laws and government regulations. Please see our privacy notice for more information. While Shire US Inc. makes reasonable efforts to include accurate, up-to-date information on the site, Shire US Inc. makes no warranties or representations as to its accuracy. Shire US Inc. assumes no liability for any errors or omissions in the content of the site.

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