Event of Interest
PWS Conference in NYC October 2003 Announced
published September 23, 2002

The following information is our tentative plan for the Vascular Birthmarks Foundation Port Wine Stain Conference to be held in New York City.

Date: Friday, October 17, and Saturday October 18, 2003 Place: Welcome Reception, Friday October 17th, 7pm (cookies/beverages for kids and wine/cheese, etc. for adults will be provided) at NYU. Dr. Geronemous will present at 7:30 until 8:30.

Date: Saturday, October 18, 8:30am - 12:00pm - Conference Place: NYU Tentative Speakers: Dr. Waner, Dr. Mihm, and Dr. Geronemous has speakers for Klippel Trenaunay and Sturge Weber. Subjects will include: latest pathology research in causes, classification of Port Wine Stain, new developments in management (Dr. G. has a specialist from California who may speak on an exciting new treatment) Speakers will be firmed up in the next month.
12:00-1:00 pm - lunch will be provided for families and speakers. There will be childcare during the conference.
1:00-6:00pm - clinic at Dr. Geronemous Office - directions and info to follow.
7:00pm - faculty/speakers/coordinators dinner. Families will be on their own to mix, mingle, visit the Big Apple.
There is discussion about conducting some meeting sessions during the 1:00-6:00pm clinic time. Kathy Francos has given me a list of topics. I am open to anyone who wants to set something up. We can ask Dr. G. for two or three small meeting areas or get meeting areas at NYU. Please send info on topics or discuss with Kathy Francos of PWS-list newsgroup.

Fees: $50 donation to VBF per family for conference and an additional $50 for clinic. You can attend one or both. Both will be a total of $100 donation to VBF. All donations are tax deductible.

Kathy Francos will be my downstate coordinator and is looking into lodging. Since we have a long lead on this, people would be smart to make a decision early and start looking to make this a fun, adventure, holiday.

I will be happy to answer any questions about the pws conference. My email address is jklfran@aol.com

We have secured a number of rooms at the Comfort Inn Manhattan, 42 W. 35th Street 212 947 0200. They have given us a rate of $125 per nite for Oct 17 and/or 18. You must tell them you are with the VBF conference.
From there it is about a 10 minute walk, or a short bus ride away. It also includes a continental breakfast.
If you can get a better rate on your own, by all means, do so.

Mission Statement:
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.

DISCLAIMER
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.

Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.