TY - JOUR
T1 - Electronic care co-ordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care
AU - Finucane, Anne
AU - Davydaitis, Deborah
AU - Horseman, Zoe
AU - Carduff, Emma
AU - Baughan, Paul
AU - Tapsfield, Julia
AU - Spiller, Juliet
AU - Meade, Richard
AU - Lydon, Brigid
AU - Thompson, Ian
AU - Boyd, Kirsty
AU - Murray, Scott
PY - 2019/12/17
Y1 - 2019/12/17
N2 - Background Electronic care coordination systems, known as the Key Information Summary (KIS) in Scotland, enable the creation of shared electronic records available across healthcare settings. A KIS provides clinicians with essential information to guide decision making for people likely to need emergency or out-of-hours care.Aim To estimate the proportion of people with an advanced progressive illness with a KIS by the time of death, to examine when planning information is documented, and suggest improvements for electronic care coordination systems.Design and setting This was a mixed-methods study involving 18 diverse general practices in Scotland.Method Retrospective review of medical records of patients who died in 2017, and semi-structured interviews with healthcare professionals were conducted.Results Data on 1304 decedents were collected. Of those with an advanced progressive illness (79%, n = 1034), 69% (n = 712) had a KIS. These were started a median of 45 weeks before death. People with cancer were most likely to have a KIS (80%, n = 288), and those with organ failure least likely (47%, n = 125). Overall, 68% (n = 482) of KIS included resuscitation status and 55% (n = 390) preferred place of care. People with a KIS were more likely to die in the community compared to those without one (61% versus 30%). Most KIS were considered useful/highly useful. Up-to-date free-text information within the KIS was valued highly.Conclusion In Scotland, most people with an advanced progressive illness have an electronic care coordination record by the time of death. This is an achievement. To improve further, better informal carer information, regular updating, and a focus on generating a KIS for people with organ failure is warranted.
AB - Background Electronic care coordination systems, known as the Key Information Summary (KIS) in Scotland, enable the creation of shared electronic records available across healthcare settings. A KIS provides clinicians with essential information to guide decision making for people likely to need emergency or out-of-hours care.Aim To estimate the proportion of people with an advanced progressive illness with a KIS by the time of death, to examine when planning information is documented, and suggest improvements for electronic care coordination systems.Design and setting This was a mixed-methods study involving 18 diverse general practices in Scotland.Method Retrospective review of medical records of patients who died in 2017, and semi-structured interviews with healthcare professionals were conducted.Results Data on 1304 decedents were collected. Of those with an advanced progressive illness (79%, n = 1034), 69% (n = 712) had a KIS. These were started a median of 45 weeks before death. People with cancer were most likely to have a KIS (80%, n = 288), and those with organ failure least likely (47%, n = 125). Overall, 68% (n = 482) of KIS included resuscitation status and 55% (n = 390) preferred place of care. People with a KIS were more likely to die in the community compared to those without one (61% versus 30%). Most KIS were considered useful/highly useful. Up-to-date free-text information within the KIS was valued highly.Conclusion In Scotland, most people with an advanced progressive illness have an electronic care coordination record by the time of death. This is an achievement. To improve further, better informal carer information, regular updating, and a focus on generating a KIS for people with organ failure is warranted.
U2 - https://doi.org/10.3399/bjgp19X707117
DO - https://doi.org/10.3399/bjgp19X707117
M3 - Article
JO - British Journal of General Practice
JF - British Journal of General Practice
SN - 0960-1643
ER -