Policy Survey

Below is a survey about different federal policy changes that WaitList Zero is currently advocating or considering promoting. Please fill this out so we can hear your input.

We appreciate your taking the time to let us know your opinions.

Name*

FirstLast

Organization

Please fill this out if you are affiliated with an organization in the kidney field.

Email*

Should the federal government support policies to increase living kidney donation?

Yes

No

HRSA Policy Questions

The Health Resources and Services Administration (HRSA) is the federal agency responsible for organ donation. The following questions concern HRSA's policies towards living donation.

Breakthrough Collaborative: In 2003, HRSA began an Organ Donation Breakthrough Collaborative, a series of meetings and discussions aimed at increasing adoption of best practices throughout the organ donation field.

Should HRSA sponsor a Living Donation Breakthrough Collaborative applying that previous breakthrough collaborative method to living donation?

Yes

No

HRSA Grants: In recent years, HRSA has offered a competitive grant program for programs that are trying to increase organ donation under 42 U.S.C 271f-1(b). Programs that aim to increase living donation have not been eligible to apply for these HRSA grants.

Should projects that aim to increase living donation be eligible to be awarded grants offered by HRSA?

Yes

No

Performance Report: Currently, HRSA’s Division of Transplantation assesses its own performance each year in a public Annual Performance Report.

Should goals related to living donation be included in this performance report?

Yes

No

General Policy Questions

Should the federal government pay financial costs to donors such as their lost wage, travel, and childcare expenses?

Yes

No

Should living kidney donors be guaranteed lifetime health insurance coverage?

Yes

No

Currently, the only transplant education guaranteed to patients is given by dialysis providers. Should all patients be educated by someone specialized in transplantation?

Yes

No

Should transplant centers be required to meet donor follow-up goals throughout the lifetime of the donor?

Yes

No

Should donors receive some form of annual stipend for participation in follow-up care and study as a way to raise follow-up rates?