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Basic Information

About Fly2Lo

Are you::

Other

Date of injury (NA if not spinal-injured)?:

N/A

Location:

Space Coast, FL, USA

Gender:

Female

Occupation:

Travel Agency Owner

Interests:

Sewing, Crafting, Traveling

Biography:

I do not have a spinal cord injury; my disability is a genetic connective tissue disorder called Ehlers Danlos Syndrome, a degenerative syndrome which affects nearly every part of one's body. Mine is particularly bad on my joints and spine.
It is complicated by a condition called dysautonomia, which is my autonomic nervous system malfunctioning.

Both of these conditions mean I'm in a wheelchair about 80% of the time.

Why did you join this forum?:

To talk with like-minded individuals and because I'm in the middle of choosing a new custom chair.

How did you find us?:

Web Search

What do you think of this site?:

Aaaaamazing!

Signature

I do not have an SCI; I have a genetic connective tissue disorder [Ehlers-Danlos Syndrome] It is degenerative and has affected my spine most of all, as well as most of my joints, causing them to degenerate, subluxate and dislocate VERY easily due to my body making defective collagen.

I also have a disorder of my autonomic nervous system, Dysautonomia, which causes tachycardia at random times, and hypovolemia among others.
I'm in a wheelchair about 80% of the time due to these.