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Please Mr Corbyn

As someone who has fought for over twenty years for a medical service for his wife, as a finalist in the British Journal of Nursing, Nurse of the Year Award 2015, as a member of the Labour Party, I posted a detailed letter, outlining the shameful politics of ME, to Jeremy Corbyn, yesterday urging him, with all the power and passion I could muster to ask this question at Prime Minister's Questions :

"Please can you explain why there is no national or local medical neurological service in the UK for patients with Myalgic Encephalomyelitis (ME), classified since 1969 as a neurological disease by the World Health Organisation (G93.10.3) Tens of thousands of seriously ill patients in the UK currently receive no ongoing clinical support, no adequate investigation, not even a safe diagnosis. Surely ME must be the only neurological, multi-system disease that is not treated with the seriousness and respect that it deserves? Instead patients are abandoned, often for decades on end, without any investigation, treatment or cure, many, as a result, have died an agonising death. People with ME need a biomedical pathway. What will you do to ensure they get it?"

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Stonebird
People with Severe and Very Severe ME are not safe within the current health system; this is not an exhaustive list by any means :
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Stonebird :
A REVIEW OF THE 2018 EDITION OF THE ME ASSOCIATION CLINICAL AND RESEARCH
GUIDE FOR ME/CFS
Dr Charles Shepherd and Dr Abhijit Chaudhuri

The MEA recently kindly sent me their "Purple Book" for review. It is so good that my well-thumbed copy now occupies a privileged, permanent place beside my computer. I have only had it two days and cannot live without it!

If you have ME then this is a profoundly useful overview of the disease.

If you want to research into or know more about ME, then you will want this treasure trove of information with its stunning coverage of Terminology, Epidemiology and co-morbidity, Medical Research, Management including pharmacological and non-pharmacological treatments, Prognosis, just to name a few of the areas .

The famous Purple Book is a gripping read!
Are you confused about the possible role of Epstein-Barr virus/glandular fever, Parovirus, Post-Poliomyelitis, Giardia, HHV6 in ME ? Here these complex issues are laid out for you in a b…