But we can only imagine what it has been like for Jade to see them die. All Jade has seen is her siblings suffering, but she was watching over them too. She would come running in to tell us Jasmine was having a fi t if we were out of the room.”

Last week the Lakes told of their grief at the loss of Jasmine. Craig, 43, said: “Her death has left a massive hole in our hearts. She was so special.

“Jasmine is the second child we have lost in a year. It is a tragedy. But she was unique and gave us great joy.”

He told how, in spite her illness, the plucky youngster was the fi rst child at her school, Humberston Park, to have a go on its new trampoline.

Craig said: “She touched so many hearts. She was a little fi ghter. She fought and fought. She was so stubborn. But in the end, she could not keep going.

“Although she could not talk we could tell by looking at Jasmine’s face what she wanted, and she could kick off like any other kid if she did not get it.”

Ben Lack Photography

Angel died from the genetic illness for which there is no known cure

The devoted father said that at school, Jasmine played the fl ute, sang, and enjoyed the hydrotherapy pool.

In between the happy times, however, she suffered severe bouts of epilepsy and the family were warned her heart could stop beating at any moment.

Mother Adele, 30, said: “Over the last few years of her life it was just school, hospital appointments and home.

“One thing that makes me sad is we never went out as a family. But it is her smile that I shall always remember.”

The charity, When You Wish Upon A Star, which has supported the family, hopes to take Jade to meet Mickey Mouse at Euro Disney near Paris.

The couple, who live in fear for Jade’s future, had vowed not to have any more children after their fi rst two daughters were diagnosed with Leigh’s.