GabyF - can’t remember the last time I really slept properly either...I just toss and turn...drift off to sleep then wake with a hot flush! Or freezing cold cos I have shoved all the duvet off....I now just sleep when I can and hope it will all sort itself out later! I would just love to wake up refreshed and ready for the day.... Been aching all weekend following T last Thursday.....every muscle and joint in my legs particularly....should probably go for a little walk but too tired 🤣💤
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Slightly obsessed with hair growth! Didn’t really worry about having it shaved off but it growing back does make me feel like there is light at the end of the tunnel! But don’t think I’ll be rushing to book the hairdressers quite yet. 🤣
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I definitely have some fluff emerging and hope that the T doesn’t make it all fall out! Looked up how fast hair grows....0.35mm a day! At 1mm every 3 days....a centimetre by Christmas...🤣🤞🎉
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Good Morning! Nikki49 - thanks for taking the time to pop in....so good to reinforce that there is light at the end of the tunnel ☀️ Alittlepixie - I hope you are a little more on top of your pain and that your visit to the oncologist nurse finds some resolution for you....! GabyF - I am also having problems sleeping- too hot, twitchy legs, head spinning, can’t remember the last time I actually slept well! I am lucky I can sleep during the day...probably the wrong thing to do but I have to as I am soooo tired 💤. Does anyone know what the hot flush thing is all about? I get the whole reduction in er but why do you get hot? Must google it! MamaTony - I have my first T on Thursday....feeling anxious so following your tips avidly! Bit C tablets at the ready! LisaT - hope you had a lovely weekend away celebrating your birthday 🎂 and to everyone....hang in there...it is a long slog...I don’t want to wish time away but I dream of spring sunshine and daffodils. GGx
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Lisa T 💐 🎈Happy Birthday 🎂 💐 It would be lovely if you get the chance to get away to such a beautiful part of the world for a couple of days! Fresh air, log fires, gorgeous views, maybe a pub lunch or two? What a treat! Enjoy your day!
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Afternoon GabyF A relief to know you are not alone...it helps I think. i would call myself a sort of ‘get on and do it’ sort of person...like a little project on the go whether around the house, holiday shopping, horses and animals...Now I have these empty days and I don’t seem to have the motivation or energy to do anything constructive. I am not really a big social person, I don’t have hoards visiting or popping in ...that’s not really me but I do look forward to my son coming home in the afternoon! I thought about learning something new and, like you felt I couldn’t commit. Maybe the OU would be good, they do short courses don’t they? I cant make decisions either...it’s like that little bit of sparkle has gone for the time being....I can’t concentrate, I can’t make decisions and I am frustrated by this person that isn’t really me...I did look at a photo the other day...taken weeks before my diagnosis....tarted up going out to a party (rare night out!) I don’t recognise that person anymore... music sounds a good idea! Get that 🎹 practice in....is there a certain piece of music you could set yourself as a little challenge? The gym is just a good way of getting me out of the house...I just do low key cycling, cross training, walking...a few weights to try and ease the tightness across my chest after mx. Classes are a step too far for me...hehehehe....I would have to book those 🤣. A new pet is an excellent idea...we got a puppy at the end of last year ( our old lab had been pts a couple of years before) my son drove me mad begging and I gave in and bought a Vizsla - she has been amazing company for me over the last 6 months, always got a smile on her face and a warm welcome home. I also lost my horse just after my diagnosis....very sudden...so having the dog has given me a reason to get up and out on these dark mornings... Here’s to the little positive things that just about keep us sane in this ever changing new world we are in. GGx
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GabyF - that sums up how I feel...I’m bored too...and not sure what to do about it. I struggle to even read a book, I seem to lack focus. It’s good to know I’m not going mad by myself 😁. I have joined a gym to give me something to ‘go’ to...and hopefully help me keep going through the winter... Enjoy your Pilates 💪 it is soooo good for you and I hope you breathing improves too. GG
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What a difference a day makes...I feel soooo much better today! Have to keep reminding myself on the really low days that ‘this too shall pass’ and it does...a new day and seemingly a load more energy too! Hopefully will continue and I can start to feel more positive....and active and generally more me...! Happy Days 😎GGxx
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Lisa-T : Fab news! The thought of going back to waiting for results scares me 😟 so pleased the news was good. Mama Tony ; Nice to hear that T is treating you kindly at the moment. Everything I read just fills me with dread.... GabyF : Make the most of your extra recovery time....💃 Catgarland : Finger crossed for T success....delighted you too have not had any SE yet....long may it last! I have spent most most of the last day or two asleep! Decided my naughtyphils are at their low point...earlier in cycle than before but same ‘knocked out’ feeling. Hoping to bounce back today and get out.... GGx
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Mornin’ all - here’s to a positive week and no nasty side effect surprises.... GabyF - I just love Italy....think I might start looking too....would like to think I could squeeze in an Easter break 😁☀️😎
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Mornin’ all! i have had sticky eyes too...not too bad just a bit irritating. I have given up on trying to predict SEs yesterday all my muscles really hurt felt like I had done some serious exercise (which clearly I haven’t 🤣). Took paracetamol all day...last night felt fine again! Defo feel more tears at the moment - FEC done, but now thinking about T. I want Christmas and new year to be special as we’ve had such a horrible 6 months...there got me started again!
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Mornin’ everyone! Off for my FEC...last one at last....I started this process at the beginning of August! Feel strangely anxious for the first time but then I suppose I sort of know what it is going to throw at me and no one in their right mind would be joyous about getting another 4 huge syringes full of toxic stuff! Can start researching T now...and will be reading all your advice. My son is slightly less charming...and just walks into the room and rubs my head...with the warm welcome of ‘hello Fuzz Head’ 😁 Sending positive thoughts for everyone....GGx
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Thinking of you Lisa-T, it’s horrid to get a delay when you are all ‘ready’ for it ☹️. I am sure it is for the best but frustrating for you and your plans. One thing I have learnt is to give up planning anything! Wishing you a speedy recovery...and sending you luck and positive thoughts for your results. GG
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Aley - hope your meeting with the oncologist was constructive and you are feeling okay... GabyF - good luck with your MRI tomorrow ....thinking of you during all that ‘ clunking’ hope they have a decent music selection! I’m doing bloods for FEC 3 ( well 4! ) and more physio tomorrow- have cording which is really annoying! And a bit tight across pecs since implant removed. On a positive note, I am feeling like a different person today....so much better! GGx
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Wishing you all a happy week....good luck with all of your treatments and hoping for minimal SE. 😊 My final FEC on Thursday - told Hubbie he doesn’t need to be there...but now thinking maybe opportunity for lunch out! With a bit of luck and a few chillis I might taste it 😁.
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GabbyF sorry that you too have been feeling a bit grumpy....I also have just noenergy which is so unlike me....maybe that’s why I feel frustrated. I wa t to be up and about with a smile on my face and I am struggling on all 3 😂. Good luck with your MRI and your holiday hunt. I simply love Italy....enjoy the search....😎.
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