Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.

Thursday, November 19, 2009

Yesterday was SUCH a Calgon Day

Oy vey. You guys remember (well, most of you) those Calgon commercials? The mom is dealing with 16 screaming kids, the laundry is piled up, the kitchen is a mess, she's trying to cook, there's sauce splattering all over the walls an dceiling, her face...her hair is a mess...someone shows up at her door with something she needs to pay for, her husband calls and says he's staying at work until 7 PM....and she finally just says, "Calgon take me away!" And she's immediately whirled to this luxurious bubble bath, candlelit room, hair up, looking smashing....

Well. That was me. Sort of. Only 1 child. Husband hunting. Add exhaustion and muscle weakness from MG, fibromyalgia pain so bad I couldn't even touch my own skin, and a child who was on fast forward and whose volume knob had broken off at "ear-splitting." Add 2 dogs, one of whom is capable of knocking me off my feet, a chair that I tripped on (Jacob's) to avoid said dog, wrenching my knee and "bad" hip....a headache from the pit of hell, Mommy guilt for not being physcially capable of dealing with my son yesterday...Oh, and we can't forget the adorable I'm-old-enough-to-be-your-mother Consumer's guy walking around our property spray painting trees that have to be removed, including my 100 year old pear tree (which I defended out in the rain to possibly save half the tree)!!!! I kept screaming "Calgon!!! Where are you??????"

Well, she didn't answer. Which may have been okay, because if I soak in the bathtub my muscles get too weak to get back out! And although I've lost EIGHT pounds from my new meds, I'm not quite svelte enough for my Prince Charming to scoop me up.

I'm bawling, tripping, yelling, dropping things on my feet, probably THE most impatient human on the planet at this moment, and I'm like WHERE'S MY BIBLE???? I thought, if I don't find something about being patient right this minute my head is going to pop off and spin around.

So I come across Colossians 1:9-14 (NKJV) (Thank you Lord!)

For this reason we also, since the day we heard it, do not cease to pray for you, and to ask that you may be filled with the knowledge of His will in all wisdom and spiritual understanding; that you may walk worthy of the Lord, fully pleasing Him, being fruitful in every good work and increasing in the knowledge of God; strengthened with all might, according to His glorious power, for all patience and longsuffering withjoy; giving thanks to the Father who has qualified us to be partakers of the inheritance of the saints in the light. He has delivered us from the power of darkness and conveyed us into the kingdom of the Son of His love, in whom we have redemption through His blood, the forgiveness of sins.

This is why I beg for your prayers. I WILL NOT make it through this life without them. Nothing else will help. Sure, I have wonderful friends who have really stepped up and are helping me physically around the house...but the day-to-day living, where the rubber really meets the road....without God, without dear friends, some of whom I haven't even met, praying for me on a consistant basis....I simply could not do it.

So I thank you for your prayers. They matter more to me than you could ever know. Who could have thought through this blog, sitting at my computer, I can find peace, knowing there are people out there lifting me up to the Creator of the Universe.

Followers

WELCOME

Thank you for visiting my blog! I am a Jesus-loving, home schooling mom to a brilliant, crazy, beautiful 11 year old boy, while fighting an illness called Myasthenia Gravis. Life is difficult, but God is good.I am married to MacGuyver (aka Doug) for over 17 years now. Every year gets better.

My passion is to educate people about chronic, invisible illness, Myasthenia in particular. I hope to encourage people to take care of each other, and let others with chronic illness know that life CAN go on.I hope you look around a bit. I'd love to hear from you, and visit your blog.