Coping as a family

Pulmonary hypertension is a life-changing experience for every member of the family. Ongoing adjustment to the "new normal" can be difficult for children with pulmonary hypertension, as well as their parents, siblings and other family members. But by facing pulmonary hypertension as a family and supporting one another along the way, your loved ones will be better equipped to cope with the changes it brings.

Read on for tips from professionals and other families coping with pulmonary hypertension.

Balancing Act: Parents Weigh in on Sibling Issues

Parenting PH Kids & Siblings

Dawn Butler is the mom of 6-year-old PH patient Stella and 11-year-old Simon. Dawn is also the support group leader of the new Philadelphia Pediatric PH Support Group. PHA connected with Dawn recently to talk about how she balances the needs of a child with PH with the needs of a sibling and what she hopes to bring to her role as a support group leader. Read more

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Coping With PH Guides

Download one or more of the Coping with Pulmonary Hypertension PDF guides below to learn about what to expect and how to move forward if you or someone in your family is living with pulmonary hypertension.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.