Solo Act

Having been a “solo act” for a little over a week, I’m ready to – knock on wood – announce my new status! The occasion of our break-up was simple: in a miraculous burst of post-DBS reality, I came to the realization that my shiny blue walker had outlived his usefulness. At its genesis, our relationship stood a marriage of convenience. My inner stubborn mule protested his attentions – until it became abundantly clear my new friend offered benefits! The rock by my side, he protected me from a precarious loss of balance, carried my packages…and my puppy, and offered a spare seat on a desolate stretch of street.

Now that I’ve left my walker by the wayside, I find myself in a strange new reality. At times, I reach for him as I leave my apartment. After all, over the course of 2+ years, his constant companionship became a force of habit and, I’ll admit, a bit of a safety blanket. Life without him may be strange but it’s neither cold nor empty. Not quite used to navigating the local terrain without my hot wheels, I instinctively head towards ramped walkways when stairs have pleasantly become an option. Mind you, my gait still has its quirks and I entertain an unfounded concern that the full force of my involuntary movements will return.

18 responses to “Solo Act”

Wonderful news, but don’t lose your focus. The streets of NYC are full of hidden dangers. Cracks, spills, waste, ice, snow, traffic. etc. Watch your step. Stay clear of people who appear to be in a hurry or to be more engaged on their i-phone. That being said, DBS has given you the gift of getting your life back to normal. I for one am thrilled for you.

The new tech stuff you are using sounds very cool. I hope it continues to improve your life.

take care- Marty

On Sun, Oct 30, 2016 at 8:03 AM, Chronicles Of A Dystonia Muse wrote:

> Dystonia Muse posted: ” Having been a “solo act” for a little over a week, > I’m ready to – knock on wood – announce my new status! The occasion of our > break-up was simple: in a miraculous burst of post-DBS reality, I came to > the realization that my shiny blue walker had outli” >

Marty, I never thought I’d be bionic! It is truly amazing to consider what technology can accomplish and I’m grateful beyond words for the life DBS is making possible for me. Sending you my warmest wishes. -Pam-

Carrie, Over the past few days, I’ve actually been thinking of you and your amazing feats. Can’t say I’ll be running marathons, but I look forward to running in the park with Ellie, my miniature schnauzer! xxx -Pam-

Your strength far supersedes those four small wheels. May they collect inches of dust. Strut if you must, with your chin up high! If ever you’re asked why… simply reply “Bionic I am & now I can!” ~ I admire you dear friend ~ ♡

Carol, Thank you for visiting my site and taking the time to comment. It’s so nice to have a positive result after such a grueling process. I’m just glad the surgeries are behind me. Sending you my best. -Pamela-

Highlights from the Bronx Zoo Walk on Oct. 4, 2015

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Email: ps@dystoniamuse.com

What seems like a lifelong experience with Dystonia began with a "mis-step" when I was 8-1/2. Dystonia may have staged a coup over certain body parts but my heart and soul remain firmly my own. I'm a friend, daughter, sister, creative mind, honorary auntie, fan of the quantum mechanical, hopefully one-day spouse, now also health activist.