Hi! I was supposed to have mine at the end of this month. Surgeons were going to do two surgeries during one hospital stay because I was also recently diagnosed with thyroid cancer. But, alas, it turns out I can't have the PCNL after all. I ended up in Pittsburgh and surgeon there said, with my clotting disorder and having to go back on my anticoagulants too soon after surgery, there is too high a risk of bleeding for me. So, for now, I'm scheduled to get the thyroid out on the 25th and we'll figure out what to do with the stone later. Fortunately, it's not giving me much trouble, so have time to wait.

I've been wondering how you're doing and am so glad you're finally getting your turn. Will be praying for you and am looking forward to hearing how it went and that you're doing well. Hang in there!

I hope you both have your stones tested to see what kind they are to see if changing diet can help. Plus have thryoid tested as there is a disorder that causes kidney stones.

Hi nora01. I just saw your post about a thyroid disorder that causes kidney stones. Anything else you can tell me about that? While waiting to schedule my PCNL last fall, I was diagnosed with thyroid cancer. I'll be having my thyroid removed on the 25th and would love to discover it was somehow the cause of my stones. Because of a clotting disorder, I've learned there's too much risk of bleeding for me to have the PCNL. I would have to go back on my anticoagulants too soon.

My surgeon told me that with the ureteroscopy, there is only a 20% chance of getting the whole 1.8cm stone with one shot. May I ask, how successful was yours? Thanks.

Oh AuntNanc I am so sorry to hear about your thyroid cancer. Will you have to have radiation after your surgery? These golden years sometimes aren't so golden!! Take care. Will certainly be praying for you!

Hi Nanc
Sorry to hear about your cancer. I hope all goes well with the surgery.

The thyroid disorder that can cause kidney stones is hyperparathyroidism.. Its where the thyroid secrets too much hormone. If you are seeing specialist for thyroid, you could ask more about it. I had too blood test to check mine between an 8 year period just to see if I had this but I did not. My stone issues are genetic on my fathers side.

I was diagnosed with hypothyroidism, so I'm not likely to have this as well. But it's worth asking. Wouldn't it be great to know that, once my thyroid was gone, no more stones?! Ha. What seems too good to be true, usually is. Thanks for the info.