Posts: 12

Topic: I'M HOOOOME

Hi all. Just got home from my first Remicade infusion. The Nurse, Warren was fabulous. Not even a mark where he put the IV. AND he is 1/2 Sicilian! Right now my only effect is drowsiness from the Benadryl he gave me for some of the side effects I may have gotten. We both agreed next time he will cut the Benadryl in half.So, I have to take a Benadryl the night of each infusion in case I get any effects while sleeping. Like total redness, itching or not breathing right. Also have to lay low for the next 2 days as I could get flu like symptoms. So I have an infusion Oct 4th and NOV 1st then it will be every 8 weeks. He says forever but my GI said when I go into Remission I will probably go off. So it was not nearly what I though it would be although he said #2 and #3 infusions the crucial ones as far as reactions then its a breeze the rest of the way. So far a piece of cake.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHINGAny suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: I'M HOOOOME

Re: I'M HOOOOME

I'm happy you had your first treatment and you are feeling ok, Lainy. I'm sure you are every nurse's dream to have as a patient. I can only imagine how funny, sweet, and so much fun you are. Woohoo for the 1/2 Sicilian nurse. I hope you continue to feel better and the Remicade really helps. Sending tons of hugs and good thoughts your way.

Love,-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: I'M HOOOOME

Glad things went well today. Hope this continues and that the treatments help.

Love & Hugs,Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice. You should always seek the advice of your physician or other qualified health care providers.

Re: I'M HOOOOME

Thanks girls. Pam, not sure I am being laughed at or with! It doesn't bother me. I will sleep good tonight as each time I have an infusion I had to take a Benedryl that night in case a reaction occurs while I am asleep. The reactions are itching, turning beet red or not breathing right. Then he said I may get flu like symptoms over the weekend. The next one is Oct 4th then Nov 1st then every 8 weeks. I stopped for Chinese at lunch and also picked up something there for dinner. Mmmmmm

Teddy ~In our hearts forever~ATTITUDE is EVERYTHINGAny suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: I'M HOOOOME

Lainy -

You were in my thoughts all day today. I am glad that it went well today....and two days of rest will probably be good for you, more than likely going to be hard to keep you down. And benadryl will definitely make you sleep so enjoy a good night's rest.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: I'M HOOOOME

Lainy, I am so happy your day went well! I can see you regaling the nurse with stories, and the two of you laughing! Here's hoping the rest of the treatments go as well.

KrisJ"Don't just have minutes in the day; have moments in time."Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: I'M HOOOOME

Kris, we did. The Nurse is a he, Warren and he was GREAT. You can't even see where my IV was. I have to take another Benedryl before I go to bed now and it works really fast! ZONK He was telling me all about his Sicilian Grandmother. There is a wonderful Italian cookie called a Pizzelle and I know just where I can get them and I will take some to him Oct 4th. I am sure his GMA made them as all the Nanas did. By the way re your other post about the head cover. Try on some wigs I still have fun with mine!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHINGAny suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

The information expressed is not medical advice. The discussion boards are not intended to replace the services of a trained health professional or to be a substitute for the medical advice of physicians or other healthcare providers. Read the full disclaimer.