Alasdair Robertson

Alasdair is chair of the Patient Advisory Board and also the first parent member of ourScientific Advisory Board. His son Felix, aged 4, was diagnosed with Duchenne in December 2014. Since then, he has wholeheartedly thrown himself in to the race to find a cure, as well as the search for innovative, disease-mitigating treatments.

Alasdair studied at Loughborough University and the University of Cambridge. He has a London-based surveying company and lives in Gloucestershire, with his wife Robyn, their two children, Felix and his little sister Lumi, aged 2, and ‘Happy’ the dog.

Most read

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.

We are proud to share with you our first ever Impact Report, read about the very real impact we are having and the many things we have been working on over the past six years to end Duchenne.
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