Support/Unite Families

When our daughter Eliza was diagnosed with Sanfilippo Syndrome at the age of four, we decided we had to do everything possible to find a cure. It was the motivation that any parent can relate to as you will “got to the ends of the earth” for your child. So, we created Cure Sanfilippo Foundation in order to pursue every avenue to change the fate for every Sanfilippo child, not just our daughter. TIME is not on these children’s side, so the URGENCY is paramount.
Cure Sanfilippo Foundation has come to represent a collection of Sanfilippo families (more than 80 globally and growing) and friends/supporters from across the country fighting to save our children under a single umbrella.
There’s HOPE for a cure, and that HOPE comes from the ACTION that is being taken from supporters like you, to further this mission to save children, and cure Sanfilippo.

Glenn and Cara O’Neill

Parents of Eliza, Co-Founders of Cure Sanfilippo Foundation

Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization

All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.

This is led by proactive families of children with Sanfilippo Syndrome and their supporters, who work tirelessly to change the fate and future for these children.

Donations may be tax-deductible.

Latest Foundation News

The combined Sanfilippo Advocacy group submitted comments to the U.S. Food and Drug Administration's (FDA) on May 5, 2020, regarding its draft guidance on drug development for Sanfilippo Syndrome for review. These advocacy group is working closely with the FDA on the...

In spring 2019, Connor Dobbyn's parents were told their son had Sanfilippo Syndrome, Type C (one of the rarest types), and that it will take his life. Like Alzheimer's in children, Sanfilippo will cause Connor to lose all the skills he’s gained, stop speaking and...

This spring hasn’t been easy for anyone. But many generous people have made it a little less stressful for families of children with Sanfilippo Syndrome (MPS III). People's support of and generosity to Cure Sanfilippo Foundation have been the rainbow in a storm of...

On May 10, 2020 ... Mother's Day in the United States ... Jill Wood shaved off her lovely red hair to raise awareness and fundraise for research to cure children with Sanfilippo Syndrome, like her 13-year-old son Jonah....

Upcoming Events

Cure Sanfilippo Foundation is proud to join 1,100 other non-profits participating in The Big Give 2020, a 25-hour online giving event hosted by The Columbus Foundation to provide essential funds for non-profits that benefit the Central Ohio area. The Foundation...

Enjoy a day of golf that also does good at the 3rd annual "Drive to Cure Carson" Charity Golf Tournament benefiting Cure Sanfilippo Foundation on Oct. 9, 2020. Originally, the outing was scheduled for June 12, but was postponed until October because of COVID-19. All...

Enjoy a night out and some laughs at a special night at Soul Joel's Comedy Club & Lounge on Aug. 27, 2020, in honor of Connor Dobbyn and to benefit Cure Sanfilippo Foundation. $10 of every $20 ticket benefits the Foundation. Soul Joel's is known for having top...

Join supporters of Connor Beats Sanfilippo for a fun 5K race on Sunday, Sept. 20, 2020, in Chester Springs, PA. This event was originally scheduled for April 19, but was been rescheduled due to the global pandemic. Check back for additional information in the coming...

Folks in Wilmington, DE, will take to the greens again for the 7th Annual Cure Sanfilippo Golf Outing on Friday, Oct. 16, 2020. The event at Rock Manor Golf Course benefits research to stop Sanfilippo Syndrome, a horrific and fatal disease in children. Despite the...