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Does anyone have any knowledge about the backorder (again) on Norpace CR 150 mg? This is the second time this year! I know that last time this happened I saw a post on the HCMA page, but I haven't seen one this time. Any info would be greatly appreciated! Thank you! ... See MoreSee Less

HCMA Community question of the day: My diagnosis of HCM has Given me.....Yes, this is an odd question of a diagnosis/disease. But here at the HCMA we hear amazing stories of empowerment, improved quality of life and lives saved. So today, think... what has YOUR diagnosis of HCM "given you"? ... See MoreSee Less

Hi! New to this page and new to hypertrophy as a disease. Will be going for an echo tomorrow to gather a final report. Wanted to understand how troubling this is and is it fatal? I'm not particularly breathless but do feel the need to breathe deeply often coz of some stifled heaviness in the chest.. ... See MoreSee Less

Congratulations are in order! Our Facebook Community has reached a milestone - 8,005 Members - we broke the 8,000 mark! Welcome one and all and thank you for sharing and following the HCMA! Stay tuned in coming weeks for exciting news from the HCMA - Together we will fight to control and eradicate HCM! ... See MoreSee Less

HCMA Community Question of the day: We know HCM has taken many things from many people. Please tell us what HCM has taken from YOU. We appreciate this is potentially an emotional question and we thank you in advance for your honesty and candor. It is only though sharing the reality of HCM that we hope to raise awareness and global understanding of HCM.. so tell us... What has HCM taken from YOU? ... See MoreSee Less

I continue to have chest pain after my myectormy. Every time i go to hospital except for twice my cardiac enzymes have been negative. I am a retired nurse. I have a pacemaker that was implanted before surgery because my heart rate dropped below 30. The doctor has not took me serious about the ICD. It feels like my heart is in a spasm, I get scared and try to wait it out but when I start having jaw pain and arm pain with a stabbing in my chest...I go to the ER. The doctors treat me as though I am a drug seeker. I do not know why they do not believe me. I feel humiliated. They most of the time do not start an IV. Last time I went to Columbus Regional Center. The doctor said you have had the surgery you are fine now and gave me 2 Tylenol . It seems very embarrassing to me .Has anyone else had this problem? Oh and once I was told the same thing left and went to see my doctor the next day and I was in Congestive Heart Failure. Why if they give me 2-4mg of morphine the spasms like go away. I feel fine. When I had my first heart attack it took 3 sets of enzymes to show positive. They run one and make you wait before they start cardiac protocol . ... See MoreSee Less

Happy Saturday HCM Community. Take a moment to invite your friends and family to LIKE the HCMA Facebook page. One simple SHARE can spread awareness and maybe encourage someone you know and love to get screened and seek medical attention! SHARE THIS to save a life! ... See MoreSee Less

The HCMA is proud to announce we have elected a new Board of Directors President!

Albany, NY July 24, 2015 The Hypertrophic Cardiomyopathy Association (HCMA) announced today that its board had elected Mr. L. Joshua Eikov as its Board President to serve the 2015/2016 term.

Mr. Eikov is the Head of Strategy and ICT and a Managing Director for Summit Mergers & Acquisition a holding of CSC Capital and the General Partner of Laveton House Partners LP a real estate trust. He is a seasoned businessman and brings almost 30 years of global experience to the HCMA. Josh is also an HCM patient.

“We are excited to bring Josh to the HCMA. He brings us both a perspective from the corporate world and from the patient mind frame. Josh is going to help us set the HCMA for the future.” said Lisa Salberg, Founder and CEO of the HCMA.

The HCMA is the leading registered 501-C3 non-profit organization for HCM and is structured with medical advisors governing all of the medical content provided by the HCMA and a Board of Directors governing the day-to-day operations and growth. The HCMA is supported by grants and donations. The HCMA does not profit from referrals to any center, devices, and medications or from any information given to assist visitors to our site or members.

Board President Elect Josh Eikov said “I have been a big fan of the HCMA and what Lisa Salberg has done for HCM for some time and I am more than happy to lean in and create some conversation with and for them. The future holds an expansion in our technology and in the number of Centers of Excellence, we help create nationally. I appreciate the Boards confidence in me.”