Grand Rapids, Mi Area Doc?

Hi, I was diagnosed with celiac by a GI doc 8 months ago after having biopsies done during an endoscopy. I have been gluten free since but am not noticing improvement in the amount of stomach and muscle/bone pains I have. I am also getting flare ups, every 3-4 weeks, that keep me in bed for a few days at a time with worse symptoms. So I'm really motivated to want to feel better! Does anyone have a doc in this area that has helped them recover?? Thanks much for your help.

I don't have a name of a doctor but I do know that there is a great group from the Anchor Baptist Church, the total church is gluten-free & they put on a great gluten-free vendor fair yearly.. Sorry, its over this year... But call the church & ask to have Nancy call you , she can maybe give you a heads up...I think her last name is Speers...I don't have the church address but it is in Grand Rapids area....the vendor fair was held at the Deltaplex...
I sure they can supply a doctors name ....

I don't have a name of a doctor but I do know that there is a great group from the Anchor Baptist Church, the total church is gluten-free & they put on a great gluten-free vendor fair yearly.. Sorry, its over this year... But call the church & ask to have Nancy call you , she can maybe give you a heads up...I think her last name is Speers...I don't have the church address but it is in Grand Rapids area....the vendor fair was held at the Deltaplex...I sure they can supply a doctors name ....

Thank you again!!! This is really helpful. My GI doc hasn't been helpful and said that I may have IBS on top of celiac. I've heard the IBS diagnosis for the last 10 years and my symptoms have continued to get worse. I don't feel that he is taking me seriously. So it's time to move on.Best of luck to you !

You are so welcome! I too, had many dx's before going gluten-free, IBS being one of them,gallbladder removed,& so on.. It's enough to drive a person crazy hearing doctors say over & over its all in your head but I living proof say keep on fighting.....Years ago I was given the death sentence of ALS, I thank God everyday for this not being the case... Been gluten-free ever since & most issues are long gone but still have weak days now & then.. BUt I'm talking, walking & remaining very healthy.......

You too will get through all the issues & the clueless doctors...

Maybe we can meet next year in Grand Rapids! I /we had a great time at the vendor fair & the group is so nice... I love Nancy....

You are so welcome! I too, had many dx's before going gluten-free, IBS being one of them,gallbladder removed,& so on.. It's enough to drive a person crazy hearing doctors say over & over its all in your head but I living proof say keep on fighting.....Years ago I was given the death sentence of ALS, I thank God everyday for this not being the case... Been gluten-free ever since & most issues are long gone but still have weak days now & then.. BUt I'm talking, walking & remaining very healthy.......

You too will get through all the issues & the clueless doctors...

Maybe we can meet next year in Grand Rapids! I /we had a great time at the vendor fair & the group is so nice... I love Nancy....

Wow, how scary to be told you may have ALS!! Thank goodness that is not the case--Celiac is treatable and I'm very grateful for that also. A good friend of mine made it to the gluten-free fair this past May (I was too sick to go at the time) and really enjoyed it, so I want to go next year and would like to meet up with you if you are there also. I do feel very fortunate that there is so much available that is gluten free. I'm going to contact Nancy and appreciate the advice...