ICE BREAKER: In honor of Independence Day, how do you now, or how have you in the past, shown your patriotism?

I have an annual 4th of July party - I have 4 CD's of patriotic music that I play during the party

I try to see fireworks every year

I sing the Anthem any chance I get, even when walking the dogs

I have Flags around the house

I have Flags, and a party, and I also go to the Shrine and do a patriotic meditation

When I was little, we had a big celebration, even the food was red, white and blue themed

I see the fireworks over the East River

I pay my taxes! ;)

We have a picnic and there is this red/white/blue jello recipe

I have a flag on my house year round

I go to Middlebrook re-enactment

I got the biggest flag I could find and placed it on my grandfather's grave!

And last but not least, our Co-Captain, Patrick, served our country as a Medic in the Army where he had a terrible accident with a head injury and he is now 100% Service Connected Disabled Veteran. So thank you again for your service my love!

OPEN FORUM:

One member is about to do a one-month trial at a local assisted living facility! She is having mixed emotions as it will mean selling her home. Best of luck to you!

One member states he is moving in 3 weeks, only half a mile away, with his son, he will have until October to vacate his current home.

Going from apartment to house, questions were raised as to how he would manage such a large place. He states his son will be helping with cleaning

Ex-wife has arranged for lawn care

Group offered suggestions of for getting assistance with these tasks if need be:

Contact local churches for people willing to donate their time to do tasks for disabled/aging in the community such as the Crescent Presbyterian Church in Plainfield on 7th Street & Watchung St., click this link for their website: http://www.crescentonline.org/ ask them about the Gifting Tree for free services donations of time and energy!

One member states his "chauffeur is ignoring him"... and he relies on him for transportation

One member had eye surgery which was to prevent MS from progressing and taking his vision, it went well, but did not actually make current vision any better

One member had 3 "local" (not systemic) CRYO Therapy treatments from our presenter from the May meeting! She states she got some benefit from it but was leary of doing the full body treatment. Here again is Julie's her website http://www.chillcryo.net/

One member shares that a heated spring in New Zeland has healing properties

Another member shares that Queens Bath in Hawaii had healing properties until the volcano ruined it

One member shares she's having a bad day, maybe the weather? increase in pain. Wearing compression gloves and knee braces with copper which she shares are available at any pharmacy or on Amazon

She also shares that she gets good relief from a TENS unit back brace which velcros around her

Another member shares his pain has been increased for a few days he thinks maybe the barometric pressure. Many members agree on this one

One member shares that they get 10-20% improvement from Omega XL and that you can try it for free

Another member says fermented Krill oil is helpful for her and also Intramax liquid which is plant based and nothing synthetic

One member is fighting to get disability

One member will be tested soon for toxic metals

One member shares that they thought she has R.A. but it is osteo. She is starting Physical Therapy

One member shares that her family at a recent gathering was mean about her limitations.

group was very sympathetic as we have all experienced people close to us who either don't understand or are unsympathetic

Another member shares she is currently not speaking to her brother due to the same situatio

One member states that every state has different laws for awarding disability and that NJ is one of the most liberal states (she is an adjuster for a company that awards or denies disability)

One member states that 2 weeks ago she had a major flare up. Newly diagnosed and was lulled into thinking "i can do this" and over-did it

group was supportive as many of us have experienced this same thing some of us time and time again! ;)

One member newly diagnosed is still working full time

One member trying to eat "clean food" is growing a garden toward that goal, but states it is so much work!!!

all agree!!!

One member shares that when he is fatigued, driving a different route helps him to stay alert rather than to take normal route and go on automatic pilot

One member gets allergic reaction to sun, another member states that this just happened to her for the first time with itching and burning she is also newly diagnosed

One member with Fibro is taking low dose Adderall for her horrible fatigue. She shares it is a double-edged sword as she feels so much more alert on the medicine, but feels she is really over-doing it since she feels so much better... she's not sure if ultimately this is a good thing..

NEXT MEETING: Saturday, August 13th.

TOPIC: this Open Forum we ended on the word BOUNDARIES and everyone had something to say! However, we ran out of time, so we will pick it up there! We will also open the floor to anyone who has any suggestions on how to get the finances of group running in the black as Pat and I have been absorbing a loss every month and with his new monthly infusion costing us $550 a month, our finances are tighter than ever... I will also share what the costs of running group are so everyone has a good understanding of what's involved. That will all show up in the meeting minutes for Aug! Hope to see you there!!!