20 years old with a 4 week old :-)

Hey I have been looking for some type of support group to help me deal and learn about this. My daughter was born with downs. I had no idea until we got home. I love to hear your stories and advice. My daughter is now 4 Weeks and is my world. Just in need of people who know what its like. Thank you sooo much

Comments (21)

Congratulations on your daughter, and welcome! My Sam is only 10 months old, so I'm kinda new at this too. But I can tell you that he has completely changed my life...for the better. I don't sweat the small stuff anymore, and I delight in every tiny accomplishment of his. The medical stuff can be worrisome, but the rest I find to be easy. There are good days and not-so-good days, but loving my son with every ounce of me is easy. :-) Your little girl will be amazing!! You'll have to put in extra effort in terms of therapy and such, but I actually find it fun--it's so neat to see how the therapists work with our kids and help them achieve their milestones. But let yourself be sad if you need to, too. My son is the light of my life, but I cry sometimes, too...and it usually makes me feel better to get it out. :-)

Yes. My babygirl has changed my life in four Weeks. I worry everyday about what the future holds for her. I am trying my best to keep it together. I have searched for people who also have children with ds. I love to hear about other people stories. I have no idea what to expect. I do cry almost everyday not because of anything more but that I want her to be ok. Congrats to you. You sound awesome.

Welcome and congratulations!!! My son Henry is 10 months old and he is my life. This group is so awesome, I found it when Henry was about 7 weeks. The ladies on here know so much and I felt so alone until I found this group! It is sometimes really hard at first, but it's so cool to see his personality come out! Am so happy you've joined us. We love to see pictures if you have any!

Hey, I also didn't find out until I was back home after giving birth (my son is almost 2 months old now). This group is easily the best thing I have found! If you need advice, support, information...it's all here. I don't have lots of advice other than try to take it one step at time and don't get too overwhelmed thinking about the distant future. Enjoy holding and playing with your new baby, and try to look after yourself, too.

Congratulations on the birth of your daughter and welcome to this group! There women in this group are amazing. Feel free to post any questions or concerns you may have, I'm sure at least one person will have an answer for you. We also had a birth diagnosis and my son is almost 20 months now. He's almost walking, signing like crazy, and has a smarta$$ personality like his Daddy. Love on that little girl of yours everyday, time goes by so fast and before you know it, she'll be walking, talking, and getting into everything! Congrats again Momma!!

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DX with SCH at 12 wks, 4 days

Me (34), DH (43), DD (12)

Kymari L'Micahel born 8 Aprill 2011, 4 weeks early w/ down syndrome. Love him so much!

Welcome to you and your daughter! Finding this resource was like magic for me! It's great to know you are not alone on this journey--the people on this board do 'know what it is like' and it is a great source of support and encouragement! When you are ready, checking out local, 'real life' resources is helpful, too!

There is a prenatal diagnosis resource that has been created by women from this board and the Ds pregnancy board. A lot of the info there is useful even with a birth diagnosis. Please check out: www.downsydromepregnancy.org --if anything, it will offer you even more of a reminder that you are not alone in your feelings and fears you may have.

Enjoy your sweetie! The newborn phase goes by just as quickly as everyone says it does!

Congrats on your baby. Have you looked into your local DS organization at all? My daughter is 2.5 and we have started going to their social events and have met 3 other families who have children with DS the same age as my daughter. It's been very helpful to have their support and friendship over the last two years. We are about to sign up for a. Weekend away in the mountains with our Ds organization. We went last year and had a blast with the other families and kids. My daughter Phoenix had a blast and the other siblings and kids with DS played with her for hours in the lodge.

It's a big change for you right now being young and having this new responsibility. Do you have anyone to support you through this time?

We were prenatally dx at 30 weeks. I was devastated and went through a huge "why me?" phase. I cried and grieved for the loss of the son I thought i would raise. it is important for you to know that this is NORMAL!! It does not mean you don't love your daughter!! the thing that helped me the most was reading books and blogs (read Kelle Hampton's blog especially Nella's birth story). I loved looking at pictures of babies with Ds. I found this board and it was lifeline to other moms that knew exactly what I was facing. Slowly I began to imagine a new son. My Alex is only 9 1/2 months old so it is all still fairly new to me...but I can tell you that the Ds matters less and less...I don't notice it as much as I once did. I don't think about it every waking moment anymore...and I went from "why me?" to "why NOT me?" I can love him, support him and give him everything I have. Hang in there mama...you're going to be just fine.

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Megan- First time Mama to Alex born 2/12/12 duodenal atrresia, TMD (resolved) and a little "extra"