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Tuesday, May 5, 2015

The recognition and declaration of a World Pulmonary Hypertension Day
is a step forward in the consolidation of a worldwide PH awareness.
World PH Day will focus on the importance of improving the quality of
life and life expectancy of more than 25 million people living with PH worldwide. Pulmonary hypertension can be a fatal disease that is difficult to diagnose. There
are many types of PH, including idiopathic and hereditary PH, which are
considered rare diseases. However, PH is most commonly the result of
other health problems.

Regardless of type, pulmonary hypertension is defined as an increase
in blood pressure in the pulmonary artery, pulmonary veins or pulmonary
capillaries, together known as the lung vasculature. It is a severe
disease with a markedly decreased exercise tolerance; pulmonary
hypertension can also eventually lead to heart failure.

Objectives

During the celebration of World PH Day the patients' organizations will launch messages on the need to:

Increase awareness and disseminate knowledge of the disease to
facilitate early diagnosis. Early diagnosis is important in decreasing
premature PH-related deaths.

Promote access to specific healthcare and treatments that increase quality of life and life expectancy.

Promote the concept of treating PH patients as a whole, which includes treating their physical, psychological and social issues.

Unify international criteria for the recognition of Centers of Excellence in PH.

Promote research that will help find the cure for pulmonary hypertension.

Saturday, May 2, 2015

Dear Respiratory Friends we are happy to introduce Chloe Temtchine, who is great fighter for Pulmonary Hypertension Awareness! Chloe Temtchine's
voice is clear, sultry and strong. She has pouty supermodel lips and
high, perfectly arched brows. She's thin and tall with tan skin, and
silky black hair. Chloe Temtchine wouldn't look out of place on any red
carpet, maybe with the exception of the breathing tubes she uses, even
while performing.

On April 3 Chloe Temtchine released her song "Be Brave," which she
debuted at a Pulmonary Hypertension Association gala in New York City in
November. The title of the song reminds us of the splendid courage it
takes to live day to day with a disease or a disability. It reminds us
that our perceptions of people should not be based on these factors,
because that would only serve to disable them further.

Friday, May 1, 2015

Dear Respiratory friends, today was published intresting review on Management of Bronchoectasis!

Read full text: http://erj.ersjournals.com/content/45/5/1446.full

Formerly regarded as a rare disease, bronchiectasis is now
increasingly recognised and a renewed interest in the condition
is stimulating drug development and clinical
research. Bronchiectasis represents the final common pathway of a number
of infectious,
genetic, autoimmune, developmental and allergic
disorders and is highly heterogeneous in its aetiology, impact and
prognosis.

The goals of therapy should be: to improve
airway mucus clearance through physiotherapy with or without adjunctive
therapies;
to suppress, eradicate and prevent airway bacterial
colonisation; to reduce airway inflammation; and to improve physical
functioning
and quality of life.

Fortunately, an increasing body of
evidence supports interventions in bronchiectasis. The field has
benefited greatly from
the introduction of evidence-based guidelines in
some European countries and randomised controlled trials have now
demonstrated
the benefit of long-term macrolide therapy, with
accumulating evidence for inhaled therapies, physiotherapy and pulmonary
rehabilitation.

Read COPD Research and Practice

COPD Research and Practice publishes basic and clinical research and review articles relating to the development, progression and treatment of COPD and related disorders

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