BORN WITHOUT EYES AND THE ABILITY TO HEAR. 16 MONTH OLD CALVIN BREZGEL IS ONE OF ONLY 40 PEOPLE IN THE WORLD THAT SUFFER FROM A RARE GENETIC DISORDER. DISORDER. WISN 12 NEWS TONI VALLIERE SHOWS THE DAILY STRUGGLES HIS FAMILY FACES...AND HOW THE COMMNITY IS RALLYING SUPPORT. 00-06 18-22 32-37 51-57 1:11-1:18 16 MONTH OLD CALVIN IS RESPONDING TO SOUND FOR THE VERY FIRST TIME. A DAY HIS MOTHER WON'T FORGET. "IT WAS LIKE PAY DAY FOR ME." A SIMPLE EVENT...BUT A MIRACLE FOR CALVIN'S PARENTS DAN AND DEBORAH BREZGEL. "MAKING SURE HE'S BREATHING, THAT WAS OUR FIRST 6 MONTHS OF FUN." CALVIN IS ONE IN 40 WORLDWIDE WITH RARE DISORDER, SOX 2. WHEN HE WAS BORN, THE BREZGEL'S FOUND OUT CALVIN'S EYES NEVER DEVELOPED AND HE WAS DEAF. "THAT DAY THEY TOLD US THE BAD NEWS OF THIS COULD BE WHERE HE MAY NOT COMPREHEND, TALK, WALK, HE MAY BE IN A VEGETATIVE STATE." HE IS FED THROUGH TUBE EVERY 5 HOURS, A CHART KEEPS TRACK OF HIS MEDICATIONS..AND OXYGEN LEVEL MONITORED. CLIP 6829 9:54-9:59 CLIP 6830 10:19-10:20 CLIP 6830 11:14-11:20 "NOW BEFORE THE FAMILY WALKS OUT THIS DOOR THEY CAN'T LEAVE WITHOUT THIS BACK PACK. DROP BAG IT HOLDS EQUIPMENT LIKE THIS SUCTIONER AND AN OXYGEN TANK WHICH COULD POTENTIALLY SAVE CALVIN'S LIFE." WITH ALL THIS EQUIPMENT AND VISITS TO 15 DIFFERENT DOCTORS EACH WEEK, CALVIN SURVIVES. BUT THOUSANDS OF DOLLARS IN MEDICAL BILLS HAS HIS FAMILY WONDERING HOW THEY WILL AFFORD TO LIVE EACH WEEK. "I KNOW THEY'RE STRUGGLING WITH THE MEDICAL BILLS AND I THINK IT'S CLOSE TO A 100 THOUSAND IN MEDICAL COSTS FOR CALVIN." FAMILY FRIEND RYAN GARDENER IS HOPING THE COMMUNITY WILL COME TOGETHER TO HELP SUPPORT THE FAMILY... SO CALVIN CONTINUE TO REACH MILESTONES. IN OCONOMOWOC, TONI VALLIERE, WISN 12 NEWS MEMBERS OF THE COMMUNITY ARE WORKING TOGETHER TO HELP THE FAMILY. YOU CAN FIND MORE INFORMATION ABOUT WHAT THEY ARE PLANNING ON OUR WEBSITE, WISN DOT