Family of girl with crippling disease urge NHS to fund potentially life saving drug

The family of a Sutton girl diagnosed with a crippling disease is campaigning to get a potentially life saving drug available for her in the UK.
Elsie Novell, 4, has spinal muscular atrophy (SMA) type two, which means she is unable to stand or walk and, as the disease is progressive, most of her muscles will eventually waste due to a lack of use.
The chatty four year old has just started pre school but was unable to celebrate her recent birthday with her schoolmates because she developed breathing difficulties.
Her mum Charlotte says the family is hoping that a new drug from America which... read more

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