Health

Every patient faces their own journey through life, learning about their condition with the best tools available to them. In the case of a rare disease like Leber’s Hereditary Optic Neuropathy (LHON), those tools can be few and far between, making it even harder for patients to plot the best course for them.

A trained journalist currently doing a PhD on the social aspects of LHON and president of Spanish patient group ASANOL, Pedro García Recover talks to pharmaphorum about his own path from diagnosis to living with LHON and working on behalf of his fellow patients.

Accessibility

EBU was one of more than thirty companies and institutions to be awarded a certificate for their initiatives and projects to improve universal accessibility and care for people with disabilities. The diplomas, awarded by Spanish technology company ILUNION Technology and Accessibility, were presented at a ceremony attended by the Director of Disability Support Policies, Jesús Celada, the Director of Universal Accessibility and Innovation of the ONCE Foundation, Jesús Hernández, and the executive director of the Spanish Committee of Representatives of People with Disability (CERMI), Pilar Villarino.

Our campaigns

Since 2008, Portugal has been a party to the United Nations Convention on the Rights of Persons with Disabilities (CRPD).
In 2017, EBU published a publication entitled "The CRPD - A New Look at our Human Rights", with the support and funding of the REC (Rights, Equality and Citizenship ) of the European Union.
The purpose of the publication is to explain how a visually impaired person or someone who interacts regularly with this group of people can benefit from the Convention.