Hey, I live in SF and I'd be interested in starting a group too if there isn't one. I've looked around a bit and have found one.

Cool if you could potentially pass on that information of the group? I would be super appreciative. I heard about one in SF and contacted one person but never heard word of any actual meetings. But anyways if you could pass on the info my email is kayra.fails@gmail.com Thanks a lot!

Hi Dakota! Just saw this today. Haven't been very good at checking these! I've met one other woman in Sac with N--she and I got together a few months ago to chat--super helpful. My neuro gave me the info for the director of the Sutter Sleep Center, and suggested I contact him if I wanted to try to get a group together--they could provide us with a place to meet, and possibly a staff member to meet with us? I never followed up on it, but maybe I should.

What group did you come across? I have idiopathic hypersomnia and would also be interested in a support group.Thanks!

I am looking for a support group, (or just someone to email or talk to)for my 12 year old daughter who has pretty severe narcolepsy with cataplexy. She feels alone and would really like to share her feelings with another 12 year old girl who might have similar issues.

What group did you come across? I have idiopathic hypersomnia and would also be interested in a support group.Thanks!

I am looking for a support group, (or just someone to email or talk to)for my 12 year old daughter who has pretty severe narcolepsy with cataplexy. She feels alone and would really like to share her feelings with another 12 year old girl who might have similar issues.

I am trying to get Narcolepsy diagnosed at Kaiser, Pleasanton. Are there any online support grps around this area? I am disabled with Neurology problem. Also have Adult ADD. Am positive for home test , Mild Sleep Apnea. Mild is not treated. I am offered an overnight test in the hospital, but am so weak, dizzy, EDS, I wonder if at age 73, I am able to get in to the hospital and get a test completed. Is it not possible to get a diagnosis without the hospital test?

Interests:Staying alive and wakeful, having fun doing it. Pursuit of the truth.

Being w/the woman I love, and looking out for the both of us (and our little dog, too).

Posted 15 October 2013 - 01:53 PM

I must clear it with Susie; but perhaps a group of 8 or less could meet @ our place. those who would not find napa a sub-optimal location in which to meet, SOUND OFF so I know it's time to move ahead w/ the idea.