Holidays

The holidays are here! This is a time of gatherings with family and friends. Many times the gatherings are centered around a meal. If the celebration is at your family home, you can plan low protein items into the menu. If you are attending a gathering at a distant relative's or friend's home, the host or hostess may not fully understand your child's special diet. Here are some suggestions for how to ease into these gatherings:

Call ahead to the host or hostess. You may be able to closely duplicate menu items with low protein items brought from home.

Offer to bring a low protein item that everyone can sample.

Try to keep your childâs leucine intake to a minimum prior to the event. This will allow for any higher protein item your child may sample.

NBS-MSUD Connect was
launched as part of the
Newborn Screening
Connect patient registry
(NBS Connect) in 2013
through a partnership
between the Department
of Human Genetics at
Emory University, the
Maple Syrup Urine Disease
(MSUD) Family Support
Group and other key stakeholders.