tag:blogger.com,1999:blog-79663549992437522832018-08-22T00:52:39.814-04:00Jonathan's JourneyI am one of many. I am not alone. Together we're stronger. We're on a journey and all have stories, these are mine.Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.comBlogger71125tag:blogger.com,1999:blog-7966354999243752283.post-58507777751597064062011-08-03T22:13:00.001-04:002011-08-03T22:13:56.117-04:00I haven't blogged since when?????
No way!!!! It is not possible that it has been three months since I last posted on here....
Well, for those of you that thought I had fallen off the face of the earth - it ain't so. My mind may have, but I have been here all along.
So... being 10 minutes past my bedtime I'll do the super-duper coles notes (x18 = cliff notes) on the last 92 days.
Had a beautiful day for Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com4tag:blogger.com,1999:blog-7966354999243752283.post-40033967834349793262011-05-03T19:46:00.000-04:002011-05-03T19:46:03.927-04:00Delusion, a chimera in my brain, a fancy, my ignis fatuus"Normal is what everyone else is and you are not." Dr. Soran - ST:Generations I was told shortly after Jonathan was first diagnosed that we would "find a new normal". At the time, I thought that meant that we would integrate Diabetes into our lives and eventually the wound it opened would heal around it and it would just become a part of us. In a way I guess that's kind of what happened, Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com0tag:blogger.com,1999:blog-7966354999243752283.post-53501625497801575732011-03-27T13:59:00.002-04:002011-03-27T14:01:52.293-04:00John and Jonathan Jonathan and I had the opportunity to do something pretty cool recently - we met John Chick of the NFL's Indianapolis Colts. John is a defensive end who, with the CFL's Saskatchewan Roughriders,won the 2009 Grey Cup championship and was named the CFL's Most Outstanding Defensive Player for that same year. It takes a lot of hard work and dedication to become a professional athlete, but it's Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com4tag:blogger.com,1999:blog-7966354999243752283.post-18518380650016958142011-03-02T20:01:00.000-05:002011-03-02T20:01:41.141-05:00I Thought it Would Get Easier I don't think I'll ever forget last year when I started my big JDRF fund raising push for 2010. I remember making that first video and how tough it was; not technically, but emotionally. It was even hard to write the e-mails to everyone telling them about what Jonathan and so many others go through on a daily basis and what the real risks of diabetes are even though we try to not dwell on Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com5tag:blogger.com,1999:blog-7966354999243752283.post-69763022210990526652011-02-18T10:18:00.001-05:002011-02-18T10:23:32.734-05:00The "IS Trap" Some may argue it is simply a matter of semantics. I call it opposite perspectives and a life choice.
It's all about "is" vs. "has".
is /ɪz/
–verb
3rd person singular present indicative of be.
has /hæz/
–verb
a 3rd person singular present indicative of have.
To be, to exist, to in most basic terms define one's self. OR To posses, to carry with, present in one's life.
I Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com2tag:blogger.com,1999:blog-7966354999243752283.post-88858900585942094642011-02-15T19:33:00.000-05:002011-02-15T19:33:47.478-05:00Kobayashi Maru<!--[if gte mso 9]> Normal 0 false false false MicrosoftInternetExplorer4 <![endif]--><!--[if gte mso 9]> <![endif]--><!--[if gte mso 10]>
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mso-padding-alt:0cm 5.4ptMarchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com3tag:blogger.com,1999:blog-7966354999243752283.post-83617792708689215262010-12-22T16:04:00.000-05:002010-12-22T16:04:00.418-05:00Finally, a post released 2 days early<!--[if gte mso 9]> Normal 0 false false false MicrosoftInternetExplorer4 <![endif]--><!--[if gte mso 9]> <![endif]--><!--[if gte mso 10]>
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mso-padding-alt:0cm 5.4ptMarchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com2tag:blogger.com,1999:blog-7966354999243752283.post-49757463409180862932010-12-15T21:57:00.000-05:002010-12-15T21:57:28.360-05:00He's too smart for my own good Jonathan's a bright kid (and he better be if he wants to make good on his plans to become a doctor), this was no news to me. Starting the pump just before he turned 5 I figured we wait a good four to five years before we would start teaching him how to use his pump. Well... little man had a different plan apparently. I guess seeing something done three or more times a day, seven days a weekMarchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com4tag:blogger.com,1999:blog-7966354999243752283.post-53969831108499317722010-12-06T19:24:00.000-05:002010-12-06T19:24:35.233-05:00One wish Aside from publishing this post today being significant in that I squeak in without a full months absence from the DOC scene; it's also a day that I feel I should (to a certain extent) be entitled to get want I want.
I really only want one thing. I know I'm not the only one who wants it. I'm willing to bet that just about everybody reading this wants the same thing. You could say it Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com5tag:blogger.com,1999:blog-7966354999243752283.post-67896707294760309742010-11-07T14:34:00.000-05:002010-11-07T14:34:39.319-05:00Hidden in plain sight All I saw was about 4" of tubing and I knew he was one of "us". This morning, two pews in front of us I noticed the short loop protruding from under shirt and I knew what was at each end of it.
It's interesting, I think, to stand back and look at the world from outside the DOC, the support groups, the fundraisers, the clinic appointments, and to for a moment take note of and appreciate Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com4tag:blogger.com,1999:blog-7966354999243752283.post-15497583831394953912010-11-01T19:42:00.001-04:002010-11-01T19:48:17.265-04:00The truth is... I am Iron Man Maybe it's because he's such a great looking guy.... Maybe it's because he's so popular with the ladies.... Maybe, it's because he really is as cool as a billionaire playboy... Or maybe, just maybe, it's because he has a miracle of technology plugged into his torso. But no matter how you slice it, he's my hero!
Someone asked me today "How do you do Halloween with Jonathan?" To which IMarchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com3tag:blogger.com,1999:blog-7966354999243752283.post-12371238254751184432010-10-13T19:52:00.003-04:002010-10-14T07:39:38.016-04:00A Moment to Celebrate in a Journey Unfinished Last night was a good night. I came home so wound up I didn't think I would be going to sleep. My nervousness had been building all day as I counted the hours until I would take my turn in front of the school board with our good friend Nicole. I rushed through my morning routine to listen to her interview on the radio. I cursed the satellite company because they don't carry the channel Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com3tag:blogger.com,1999:blog-7966354999243752283.post-60594209472169934882010-10-07T19:44:00.001-04:002010-10-07T19:48:02.562-04:00The Princess I'll admit it, I have a great deal of guilt about this. I racked my brain for the last 24 hours to think of something, anything interesting in my life that has nothing to do with Diabetes. Me? Well, not so interesting. My work? Yeah, no, this would be a 3 day b!*@# fest. It took me almost 24 hours to figure out what to write about. Here comes the kick in the head. It's Alexandra. I Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com6tag:blogger.com,1999:blog-7966354999243752283.post-52024979528368846672010-10-05T19:21:00.000-04:002010-10-05T19:21:34.001-04:00There may have been more air in my head than in the line Yikes! 28.7 (517)! That was the call from Latchkey at 9am this morning as I was in the middle of a conference call with a customer and our plant (not to mention the pesky sales guy that was motioning to me through the window because he needed something for another client). My first thought: #*@&!, another kink. My second thought: Latchkey can pump - go for it and call me back in an hour!
Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com3tag:blogger.com,1999:blog-7966354999243752283.post-67934743520609883212010-09-30T13:22:00.000-04:002010-09-30T13:22:31.750-04:00Joined another club Without using a stainless steel cannula it was presumed inevitable. No time was wasted in getting to it.
We've been chasing highs for the last 36 hours (high teens - low 20s, 320-414). Yesterday Jonathan seemed to have a slight fever (warmer than usual forehead) at lunch but was otherwise himself and wanted to stay at school, but when he got home his temperature was normal, as well as Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com3tag:blogger.com,1999:blog-7966354999243752283.post-83213994429804554572010-09-27T19:40:00.000-04:002010-09-27T19:40:15.518-04:00Upgrade!
Oh! And speaking of cool......
The watch kinda took a backseat today, at least in the "new" and "cool" arena. I know I kinda left that little cliffhanger at the end of the previous post... I did that on purpose, because I knew something. I pretty much knew it when we started Jonathan on the pump but it wasn't a sure thing until the middle of last week, and even then we didn't have Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com2tag:blogger.com,1999:blog-7966354999243752283.post-26509706912937331142010-09-24T19:09:00.001-04:002010-09-24T19:11:04.368-04:00Watch me!
I'll spare you another round of "how much we love the pump". Believe it or not, we did find one shortcoming that we are not crazy about right from the beginning. It's nothing huge, but it was concern enough that I decided to add to Jonathan's gear.
When we bolus Jonathan and have the BG reminder on, we can set the pump to alert when a certain period of time has elapsed. While this is a Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com4tag:blogger.com,1999:blog-7966354999243752283.post-69914834552062011742010-09-20T19:54:00.000-04:002010-09-20T19:54:03.721-04:00Happy Birthweek
It started out simple enough... it was going to be a class party at McDonald's, the same party Alex had in her SK year. As with almost all things D, planning is everything - so yes, I booked a September party back in April. We were there one day for lunch on a weekend and I knew the parties fell at off peak hours. Jonathan was still on MDI and at the time a pump was not high on the Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com3tag:blogger.com,1999:blog-7966354999243752283.post-27400839678376407262010-09-16T19:48:00.000-04:002010-09-16T19:48:50.075-04:00Reluctantly I did it, and very glad I didn't miss out I meant to get to this about a week or so ago, but as you know things got a little hairy (speaking of a little hairy; and yes, infusion sets double as miniature waxing strips).
When we first met with the Animas rep, she insisted that we were going to each wear a set to see what it was like. Quite frankly, she kinda rubbed me the wrong way about the whole thing. Even when we had the reps Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com5tag:blogger.com,1999:blog-7966354999243752283.post-1496368630309303612010-09-15T19:24:00.000-04:002010-09-15T19:24:43.456-04:00Down, but not out We're baaaaaccccckkk!
Well, what can I say? It was a s#!^^$ 5 days, but things are lookin' up. Like the mainstream pop phenomenon the Willie was, our pumplessness was short lived. Of course Jonathan had stellar numbers on the shots today, but we will get there with the pump too, and beyond. As always, thanks to all for your kindness and support!
I asked Jonathan if he wanted to go Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com3tag:blogger.com,1999:blog-7966354999243752283.post-59548788358958777762010-09-15T07:52:00.000-04:002010-09-15T07:52:18.225-04:00A song is stuck in my headOne, two
One, two, three, four
On the pump again
Just can't wait to get on the pump again
The life I love is getting shot free insulin
And I can't wait to get on the pump again
On the pump again
Eating things that I've never been
Sleeping in on Saturday mornings again
And I can't wait to get on the pump again
On the pump again
Me any my "AAA" beta cells take trip
We're the best of Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com2tag:blogger.com,1999:blog-7966354999243752283.post-4981560604267904002010-09-13T16:27:00.000-04:002010-09-13T16:27:38.768-04:00Irony I remember a time when I was dead set against putting my son on an insulin pump. It seemed as if there were too many risks to make it worthwhile. I eventually came to realize that people tend to share bad news more than talk about the status quo and when things are non-events and the potential issues were far and few between. It took almost a year and a lot of researching and soul searching, Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com7tag:blogger.com,1999:blog-7966354999243752283.post-71167500911348553632010-09-10T11:26:00.000-04:002010-09-10T11:26:14.241-04:00A Bump in the Road I was originally going to write today about my own personal (albeit brief) experience with the pump, and I still will, but a strange thing happened on the way to the blog.
First off, Jonathan is loving the pump (aside from set changes). He loves the fact that he can have a meal and not see a needle. And although the novelty will surely wear off at some point, he thinks his new pump is Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com6tag:blogger.com,1999:blog-7966354999243752283.post-89043355219872605822010-09-07T19:30:00.000-04:002010-09-07T19:30:27.517-04:00HEY! Diabetes!..... Seh 'ello to my l'il friend
I've been waiting over two months to use that post title - ever since we chose Jonathan's new weapon. And, what a little pistol it is.
It was strange. I got up this morning and there was nothing. I was expecting myself to run out of the bedroom, rushing to get ready, only to be at the hospital two hours early, but it was a calm and orderly start (amazing considering it was Alexandra's Marchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com7tag:blogger.com,1999:blog-7966354999243752283.post-89207949498976669962010-09-06T08:41:00.001-04:002010-09-06T08:41:55.516-04:00Goodbye, Farewell, and Amen Just under an hour ago, we said goodbye to one of our constant companions - Lantus. Jonathan received what is planned to be his last ever injection of the stingy stuff (still have a couple vials in case of pump issues but that's not part of the intended plan).
He's not sorry to see it go either. He's hated the stuff since day one and I can't say I blame him. I had to do a little researchMarchttp://www.blogger.com/profile/07040129100658914520noreply@blogger.com5