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1 MODEL 504 PLAN This model Section 504 Plan was developed by the American Celiac Disease Alliance (ACDA) and the Disability Rights Education and Defense Fund, Inc. (DREDF). * IMPORTANT The attached 504 Plan is intended strictly as a guide for parents. It illustrates accommodations typically needed by children with celiac disease when they are in the school setting. A 504 PLAN MUST BE ADAPTED TO THE INDIVIDUAL NEEDS, ABILITIES, AND MEDICAL CONDITION OF EACH INDIVIDUAL CHILD. Not all of the accommodations listed are needed for every child with celiac disease. When developing a 504 plan include those items from the model which will ensure the specific needs of your child are met. Talk to your medical team about what plan makes sense for your child. * DREDF is a leading national civil rights law and policy center directed by individuals with disabilities and parents of children with disabilities. DREDF's Children and Family Advocacy program seeks to preserve, strengthen and enforce the rights of children with disabilities in school and to ensure their right to a free and appropriate public education in the least restrictive environment by supporting and training parents, caregivers and child advocates about laws that protect the rights of children and assisting them in navigating the complex process through which these rights are accessed. Additional information about DREDF is available online at or by phone at (800) American Celiac Disease Alliance

2 Model 504 Plan for a Student with Celiac Disease Section 504 Plan for School School Year Celiac Disease Student s name Birth Date Grade Disability Homeroom Teacher: Bus Number: Objectives/Goals of this plan Celiac disease is an autoimmune disease that causes damage to the intestinal lining, interfering with the absorption of nutrients. Untreated, celiac disease causes multi-system complications such as diarrhea, constipation, gas, bloating, iron deficiency anemia, decreased bone density, failure to thrive, short stature, and behavior problems. The only treatment for celiac disease is a strict gluten free diet for life. Gluten is found in wheat, rye, barley and contaminated oats. Therefore, all foods with wheat, rye, barley and oats must be eliminated from the diet. In addition to the foods being gluten free, it is equally important that these foods are not contaminated by coming in contact with gluten containing foods during their preparation or service. American Celiac Disease Alliance 2

3 1. Provision of Celiac Disease Care 1.1 All staff members involved in the care and education of the student must receive training in the management of celiac disease. This includes teachers, classroom assistance, substitute teachers, cafeteria workers, office staff, school nurse, or any other staff that has primary care for the student. 1.2 All staff who interacts with the student on a regular basis understands celiac disease, can recognize symptoms of gluten ingestion, and work with other school staff to eliminate the use of gluten containing foods in the students meals, educational tools, arts and crafts projects or incentives. 2. Meals and Snacks 2.1 The only treatment for celiac disease is a strict gluten free diet for life. Gluten is found in wheat, rye, barley and contaminated oats. Therefore, all foods with wheat, rye, barley and oats must be eliminated from the diet. This includes the obvious sources such as wheat breads, pastas, buns and rolls but it also includes such items as soy sauce, some broths and meat bases, some soups, gravy thicken with wheat flour and breakfast cereals that contain malt or malt flavoring. All labels must be carefully reviewed to be sure no gluten containing grain is used in that food product. 2.2 In addition to the food itself being free of gluten, the food cannot come in contact or be contaminated by gluten containing foods. This means the gluten free foods need to be prepared in a separate area, cooked in separate pans and served with clean gloves. 2.3 In order to provide a balanced meal containing the 4 groups necessary for reimbursement, a gluten free bread or bread alternative must be offered at all school meals. This would include such foods as a gluten free bread, gluten-free roll, gluten-free cereal and gluten-free pasta. The meat and meat alternative must also be free of gluten containing grains such as fillers in hot dogs, poultry injected with wheat or barley, and a gluten containing grain used as an extender in other meat products. 2.4 School food service personnel will develop a system for identifying the student when moving through the cafeteria line so that a member of the staff can ensure the selected food is safe. (Some schools require that these students identify themselves to service staff or use specially code lunch tickets.) 2.5 The school will designate a person to be responsible for ensuring that lunch tables and surrounding areas are thoroughly cleaned before and after lunch. It is recommended that a designated sponge or cleaning cloth be used for the gluten free area to avoid cross contamination. American Celiac Disease Alliance 3

4 2.6 Teachers will give the parents/guardians a 24 hour notice of any special events at which food will be prepared that is not from the cafeteria. The school will provide parents with a gluten-free food option for event. Parents may choose to provide appropriate food for the event. 3. Bathroom Access 3.1 Accidental exposure to gluten may cause gas, bloating and diarrhea; therefore, the student shall be permitted to use the bathroom without restriction. 3.2 The student will also need access to hand washing facilities after handling products that contain gluten such as Play Dough or paper maiche. 4. Classroom Art Projects 4.1 The student will also need access to hand washing facilities after handling art projects or products that contain gluten such as Play-Doh or Paper Mache. 4.2 Parents will be informed 24 hours in advance of any gluten containing items being used in a project so the parent can make appropriate substitution if necessary. 5. Field Trips and Extracurricular Activities 5.1 Parents will be notified of upcoming field trip plans that would involve food or food related activities. The school will provide parents with gluten-free meal option for any off campus school sponsored activity. The parents may choose to provide appropriate gluten free alternative options. 6. Communication 6.1 The school staff will keep the student s celiac disease confidential, except to the extent that the student decides to openly communicate about it with others. 6.2 The school staff will provide reasonable notice to parents/guardian when there will be a change in planned activities such as field trips or parties. 6.3 Each substitute teacher and substitute school nurse will be provided with written instructions regarding the student s celiac disease care. 6.4 Prior to the beginning of every school year the new classroom teacher will receive a copy of the 504 plan and will review it to ensure that the steps necessary to keep the student safe are clear and understandable. Written documentation of this process will be provided to the parent before the child enters the classroom. American Celiac Disease Alliance 4

5 7. Emergency Evacuation and Shelter-in Place 7.1 In the event of emergency evacuation or shelter-in-place situation the student s 504 Plan will remain in full force and effect. 7.2 The parents/guardians shall provide the school with a 3 day emergency supply of non-perishable gluten free foods. 8. Parental Notification 8.1 The student s parents/guardians shall be notified immediately in the following situations: The student has eaten a food item that contains gluten. The student has symptoms of gluten ingestion such as abdominal pain, cramping, diarrhea or any learning or behavioral problems. 9. Emergency Contacts: American Celiac Disease Alliance 5

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