We need your help!

As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!

Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference. Read more about ways to support people with Fabry disease.

Tuesday, March 03, 2015

"Discovery consists of seeing what everybody has seen and thinking what nobody has thought." -Albert Szent-Gyorgyi

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Fabry Disease Community Announcements

08-05-2014

Expression of Hope III

Please participate in the 2014 Expression of Hope III program.
Visit www.expressionofhope.com to learn about submission requirements and please see the attached flyer .
Expression of Hope flyer All entries must be received...

We are seeking camp volunteers for our 26-28 September Charles Kleinschmidt Fabry Family Weekend Camp at Victory Junction in Randleman, NC. Travel is on Thursday and Sunday. Volunteers are needed to fill...

What's Happening in the Fabry Disease Community (Please use scrolll arrows to see more articles)

... by Dawn Laney with illustrator Michael Johnson.
We are very pleased to announce two new educational books for pre-teens and teens with Fabry disease. Dawn Laney, Genetic Counselor/Research Coordinator and all...

The Coast-to-Coast Fabrys Walkabout ...
Courtnay Midkiff's incredible journey to support people with Fabry disease.
On March 1, 2013, 23 year old Courtnay Midkiff started his journey walking from the east coast...

Join the Fight

Founder's Corner

Greetings everyone! We've come a long way and I'd like to share a few things with you from time to time. Thanks for listening (reading) and for your input and participation. I remain very fortunate and proud to serve the Fabry community. June 2012. Founder and President, Jerry Walter