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Myasthenia GravisFor support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Long distance vision

In the beginning, the eye would be like a camera lens having problems to adjust the picture sharpness of an image quickly - so it was in and out of focus every few seconds.

Then summer came and the horizon stayed really blurred for most of it. But on taking Mestinon the image would be sharp with each trial dose. I changed reading glasses as well and much to the surprise of the optician needed yet a new pair after only 2 months. With Mestinon I could actually go back to the 2 year old glasses again.

Now since about a month I´m checking and re-checking many times outside my house but the horizon is extremely clear all the time - I can see for miles again like I always used to, and also without the Mestinon.

Do you have long or short fluctuations with your type of vision problem or is the problem quite stable?

My vision changes ALL the time -- even from morning to night. I've had pretty bad double vision since last fall. This summer, my vision would sometimes be "single" (normal) early in the day.

I think the first sign of double vision is often BLURRY vision. Also, you sometimes get double vision in only ONE direction. For instance, for a couple of years I had double vision ONLY when looking UPWARDS. Like if I was looking in the mirror and doing something to the top of my hair, I would see two images. The rest of my vision was mostly normal until last year.

Now that I wear the stick-on prisms, I seldom think about it. I do see TWO images at night (looking at the alarm clock), after taking off my glasses. I just roll over, close my eyes, and go back to sleep.

Double Vision was all I had for the first 7 to 8 months oh and droopy eye lids but I didn't know that at the time never had any blurry vision but were talking MG so I'm sure you can mine varries from mild to severe and I only do my reading in the morning as I know I will be better sometimes when out its like I only see in snap shots it's never that stable or constant
Alan

I´ve had the double vision where the kids I teach all had 4 eyes! –
Odd because you think they can all tell you are seeing double and of course they can´t!
But the blurriness did happen way more often and for longer periods.
It sounds like Jana would settle for gallstones and I would be quite happy to settle for accommodation!!!!
BTW: I´m still baffled at the continual improvements especially as just a few weeks ago I was sure it was all about to all go downhill.

Thank you for those good wishes.

Alan

Are you taking medication? Do you notice that helps?
Seeing in´snap shots´is an interesting way to describe your vision.

Jana

So another question......Does your eye sight ever fluctuate back to a minimal amount of visual problems?
I mean do you have periods of some days where you don´t actually need to wear the prism glasses?

I have double vision in both eyes that comes and goes. If I read longer than ten minutes the words start blurring and I can see double words faintly below the real words. I notice my double vision the most when I look at the moon. I will see another moon offset below the real moon. One time my vision was so bad that my daughter appeared to have two noses. I was sober, really... I was. I only recently started Mestinon, and so far, I don't see any vision changes, but colors seem to be much brighter, but that could be because I'm feeling better and everything looks better when I feel better.

I have double vision in both eyes that comes and goes. If I read longer than ten minutes the words start blurring and I can see double words faintly below the real words. I notice my double vision the most when I look at the moon. I will see another moon offset below the real moon. One time my vision was so bad that my daughter appeared to have two noses. I was sober, really... I was. I only recently started Mestinon, and so far, I don't see any vision changes, but colors seem to be much brighter, but that could be because I'm feeling better and everything looks better when I feel better.

HAHAHAHAHA!! I "hear" ya!

I have a card I carry in my billfold AND in my car that says:

I am NOT intoxicated. I have a condition called Myasthenia Gravis. Symptoms can occur separately or in any combination. They include, but are not limited to:

Double or blurred vision

Droopy eyelid(s)

Slurred speech

Weakness of arms and/or legs

Affected balance (dizziness)

Difficulty in swallowing

Difficulty in breathing

Please call my physician or hospital right away. (See back of this card.)

So another question......Does your eye sight ever fluctuate back to a minimal amount of visual problems?
I mean do you have periods of some days where you don´t actually need to wear the prism glasses?

Thanks,

Anacrusis

So far, my double vision hasn't gone away -- but, I am still hopeful. I've been in a couple of exacerbations since the DV started -- and I HOPE that once I get OUT of this cycle of exacerbations, my vision will return to "normal".

SOMETIMES when I get up in the morning, I don't have DV as I walk to the bathroom (where I leave my prisms at night). It usually returns during or shortly after my morning rituals......maybe 10-15 minutes???

I've been doing an experiment -- I don't want to mislead or misinform anyone. I currently do NOT have double vision when looking to the left (head remains still, eyes move), although DV remains in all other directions. So, while sitting in my computer swivel chair WITH my glasses OFF, I look at an object about 15 feet away. While I am looking leftward, my vision is clear. As I swivel back to the right (eyes moving, head staying still), the object blurs (goes out of focus) for a brief time -- THEN I see two distinct objects. I repeated this experiment several times...........the same thing happened over and over.

I went to have my eyes refracted recently and was told that my eyes were worse.

When I took the prescription in to an optician, I got weaker glasses than my previous most recent ones (I actually had to get one eye changed to the old prescription).

I didn't know whether to post this in this thread or the one about cognitive dysfunction and I didn't know whether I should have posted about myself or the doctor but I'll let you guys think about it ...

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