** Due to the increasing severity of MY ILLNESS, it has become impossible for me to continue to post on a regular basis. Unfortunately, as much as I desperately long to, I am also unable to visit each of your blogs often or reciprocate all the loving, supportive comments many of you continue to leave - even though at times it may appear as though you've arrived at some long ago, forsaken blog! With that said, I really want you to know that I miss every single one of you and that I really am still here! I'm just too sick and too weak most days to be able to sit up long enough to create a brand new post...or even read one. However, I absolutely do receive AND read every new encouraging word you leave (and, often, the old ones, again and again!) and I cherish them now more than ever! I truly appreciate your love, support, and, most importantly, your precious time spent on your knees in prayer for my family and me. It ALL means the world to me and I am truly blessed to have friends like you!~Hugs and Sister Love, Teresa

FYI: All comments come to my email, which I can easily read on my phone. I also enjoy Facebook on my phone because I can catch up on A LOT in a very short time there. Soooo, if you're on Facebook, come 'friend' me there! {{HUGS}} **

13) WHO ARE YOUR POTS DOCTORS AND/OR WHAT DOCTORS/SPECIALISTS DO YOU RECOMMEND?

My original cardiologist who suspected that I had POTS was Dr. Olubunkola M. Olubi (Dr. Olubi) at Cardiac Disease Specialists(Newnan, GA Office). Dr. Dan Dan (yes, his name is Dan Dan!) who also works for Cardiac Disease Specialists (PiedmontHospital - Atlanta Office) is the physician who confirmed my diagnosis with the Tilt Table Test (TTT).

It wasn't long after the TTT that I was referred to the VANDERBILT AUTONOMIC DYSFUCTION CENTER at VanderbiltUniversityMedicalCenter in Nashville, Tennessee. There I was evaluated and treated by Dr. Satish Raj. I HIGHLY recommend Dr. Raj and his staff at Vanderbilt. I could not be more pleased with that facility! My husband and I have been treated with the utmost dignity and respect every time we have been there. Everyone we have come into contact with has been very, very kind and compassionate. They have listened to everything we have had to say and they have done their absolute best to answer all of our many, many questions. Since my initial evaluation, I have been back twice and have been in frequent contact with Dr. Raj via email. I was scheduled for another follow-up with Dr. Raj not too long ago, but I have not been well enough to travel. I hope to be able to go again soon.

The doctor who truly keeps everything going for me is my Primary Care Physician (PCP), Dr. Patrick Railey. He is an amazing family practice doc I used to work with, go to church with and do medical missions with before I became so sick. Like most physicians, he was not extremely knowledgeable about Dysautonomia before my diagnosis. However, he has really went out of his way to learn as much as he can about it so that he can help me as much as he can in his capacity as my PCP. He has been a huge advocate for me and a true blessing to my family and me during this crazy time in our life.

I do not have any personal knowledge about any other doctors; however, you will find a great PHYSICIANS' LIST at the Dysautonomia Information Network (DINET) website.

14) DO YOU HAVE ADDITIONAL RESOURCES YOU CAN PROVIDE?

Absolutely!! I have provided a few on the right side-bar of my blog but I have been working on a much more comprehensive list for you!

This completes my FAQ series. I know for some it has probably been a bit boring. However, I can only hope and pray that there have been at least a few who have found it beneficial because they have been searching for answers related to their own battle with this illness or for those not yet diagnosed. I also hope it has helped answer some questions for some of those who know me but haven't quite understood what has been going on in my life.

Either way, thanks for taking the time to read these posts. As I said at the beginning of the series, in the next few days, I will create a separate page just for these questions. Then I will put a link to it at the top of this page for quick reference.

Thanks again for all the love and support you all continue to show to my family and me. It means more to us than you'll ever know!!

I really am enjoying your FAQ's, as it helps me to see that alot of what I thought was "normal" for me really wasn't. I am also sorry that you have such a reason to have such a blog. In any case, you may link to my blog... myjourneywithpots.blogspot.com

Fantastic work Teresa I am really impressed. How you managed to get it all together amazes me, my brain fog has been so thick of late just making my coffee in the morning has been complex. I hope you gave yourself a big high five for your brilliant work.

If you wanted to add another new resource there is:

DARE:Dysautonomia Awareness Rarely Experienced.

http://dysautonomiacs.wordpress.com/

This is a new group blog I'm part of aimed at raising dysautonomia awareness. It's still in it's infancy but should be fully sorted soon.

Another fantastic example of your gift of communication, my friend! So glad you are using it to inform and encourage those that God is bringing into your life! I always knew He was going to use this gift of yours in a big way. Thinking about you and praying for you and your precious family!!! Love you!

Hi Teresa,I've never heard of this ailment and I am so impressed with what seems to be your incredibly positive attitude. I hope you are able to find peace and joy daily and thanks for checking out my blog, too. I enjoyed your comment.

I just caught up on all of the posts that I missed in this series that you are doing and I have learned so much. It is amazing to learn of what people who are ill go through and how they have got to have God to get through it sometimes. I do not know how anyone could get through and illness, such as dysautonomia, without God. It makes me so much more compassionate being informed. Thank you so much.

Want to say hi. My son has a very severe and degenerative disease of the autonomic nervous system. He doesn't suffer so much from POTS but his systems are greatly affected and getting worse as he gets older. He is 11. He is a light in our lives and we thank God daily for giving him to us.

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This is my personal blog where I share about my life and personal walk with Christ, as I deal with a very rare and debilitating illness called Dysautonomia/POTS. I hope to educate and help spread awareness about the disease, while keeping my friends and family up-to-date on all that is going on with my family and me.

You may click on the 'ABOUT ME' link at the top of this page to learn more details.