very happy today with my visits to NIH. Tumor continues to shrink and is now 38% smaller. The pulmonary embolism is also smaller but unfortunately still there. I will continue to be on a blood thinner for 3 to 6 months. Next visit will be months.

DAS43 wrote::D very happy today with my visits to NIH. Tumor continues to shrink and is now 38% smaller. The pulmonary embolism is also smaller but unfortunately still there. I will continue to be on a blood thinner for 3 to 6 months. Next visit will be months.

Congratulations on your success. Think that calls for some celebrating.

We're back from follow-up #12. All good! They've decided to schedule the next one for SIX MONTHS out. This is a first for me. We'll see if Dr. Rosenberg lets the order stand (he vetoed it last time it was suggested).

I'm so happy for you, Celine!! What a walking miracle you are. I have bilateral lung mets and just failed Folfiri. At this point I'm going to start looking at the trials. Your blog is so incredible helpful to me. Thank you for taking the time to keep us all up to date.

I'm sorry that FOLFIRI didn't work. The world of clinical trials is much, much bigger now than it was just two years ago. I hope that you find many options. If you're MSS, here is a link to the trial finder that two of our own Colon Club members developed.

Celine: EDITED to fix trial finder link.

Last edited by Sleen on Wed Jul 12, 2017 7:45 pm, edited 1 time in total.

That is an old link to the clinical trials finder. Now, Fight Colorectal Cancer did pick up Tom's project and we have a shinny, wonderful web-based finder: Late Stage MSS-CRC Curated trial finder. Here: http://trialfinder.fightcrc.org/