Together with Singapore Port Workers Union (SPWU) and Port Officers’ Union (POU), they will be blessing RDSS beneficiaries with a goodie box which will be kindly delivered by volunteers right to their door step! On behalf of all RDSS beneficiaries and families, we give our deepest appreciation to SPWU and POU for always having us […]

Chloe Mah’s treatment for a rare genetic condition that affects her muscles costs S$40,000 a month before subsidies kick in. Estimating that there are 600 to 700 children with rare diseases, patient advocacy group Rainbow Across Borders says the rare disease fund that the Government is looking to set up needs S$200 million at the start for […]

Thank you @thevagabondclub and @uncanned.art for organising unique – an art exhibition silent auction fundraiser for RDSS (Rare Disorders Society of Singapore). It was a great success and we look forward to more exhibitions! @ The Vagabond Club, Singapore, a Tribute Portfolio Hotel. A total of $3,000 was raised for RDSS this year. Thank you […]

On 22th November, a volunteer group called Colour Fighters is organising a lunch party for RDSS beneficiaries. During the event, there will be an award presentation to this year’s caregiver award recipients.

CLUB RAINBOW (SINGAPORE) presents a new initiative under Care Connection SEMINAR ON “MANAGING RARE GENETIC DISORDERS” ABOUT THE WORKSHOP Critical information on rare genetic disorders Symptoms and distress signals Options to treat/control illness and other life-saving alternatives Monitoring and home-administered methods to improve conditions This seminar is open to all caregivers and families, and members […]

Rare Disease Day 2017: Balik Kampung – Back to basics Date: 26 Feb 2017 Time: 9.30am – 12.30pm Location: Enabling Village, Hall 1 & 2, 20 Lengkok Bahru, Singapore 159053 Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among […]