Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

The breakthrough also could solve the lingering question of why many sufferers have extremely painful hands as well as other “tender points” throughout the body, and why cold weather seems to aggravate the symptoms. In addition to feeling widespread deep tissue pain, many Fibromyalgia patients also suffer from debilitating fatigue.

Neuroscientist Dr. Frank L. Rice explained: “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidences that the blood vessel endings could also contribute to our conscious sense of touch… and also pain,” Rice said. “This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

Current treatments for the disease have not brought complete relief to the millions of sufferers. Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressants and even simple advice such as “get more sleep and exercise regularly.” Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure. Other expressed frustration about how much they had suffered already:

“When are they ever going to figure out that things are never “all in your head?” said one commenter. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy. People have suffered through this since they were invented. Prescribing SSRIs for everything is not the answer any more than a lobotomy or hysterectomy was.”

The announcement has the potential to unlock better future treatments and undoubtedly has patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved.

3,052 Responses to "Fibromyalgia Mystery Finally Solved!"

It amazes me that people are still responding to this post five years on from when this was first published.

There has been follow up to this by the writer, no mention of any more tests that have been done and no cure. Virtually a waste of time, and disgusting, since they are giving hope to all the sufferers with nothing solved!

Valerie, it is more than 27 years I am suffering of Fibromyalgia. I found respite with vitamins, herbs, amino acids given to me by an alternative doctor that helped me.
Now there are new discoveries about cannabis. It is not the cannabis we usually know. Episode 1
runs until this evening, at 9pm begins episode 2. I have seen the first series, amazing what cannabis can do. It is used in a lot of countries.
Please look at it and listen carefully

Thanks for your reply Viviane. Cannabis is very good for pain relief, but that is not my main symptom, though sometimes, when bad weather is coming in, it might help. As it is, I take a couple of Paracetamol for a few days which tides me over till it is warm and sunny again. I didn’t see the programme as I only read your post today. Very busy in the garden yesterday. I am not sure if you live in S. Africa or where you live, as obviously it would have a bearing on whether the programme was being aired or not. My problems are tiredness, lack of co-ordination, extreme tiredness when standing or walking. Lots of money spent on every sort of Doctor who could possibly have helped, and specialists, even Hypnotherapy and a Bioenergist. Nothing helps. I have had it for 17 years, and am 69 years old, and worried about the future having this. If Cannabis helps you, I am very glad for you.

Dear Valerie,
I live in the US, where are you living?This program was aired even to New Zealand, just to tell you it was in the whole world. Everything you tried is useless. The only way to get much better is to strengthen your immune system. And this is what I did, going to an alternative medicine doctor. Only the vitamins, antioxidants, herbs turning into a vegetarian raccomended by my doctor I could get rid of my arthritis and everything that goes with Chronic fatigue and Fibromyalgia. I still have rheumatism that when there is bad weather I can feel it in my bones, but I go to a spa with a spring specially for rhumatism that can help me and it does.
As for Cannabis, it should be given by a doctor who deals with it. It is not marijuana at all.
I know what I said before and it seems that they don’t listen and do not want to try to get out of CFS. Just the will to begin.

Thank you for your post Guy. I have gone on a couple of sites showing You Tube videos and have saved this. I will also look for the other site you mentioned re Dr. Bauer. It is all very interesting, but it means an operation I believe, in Switzerland, and we just do not have this amount of money. Have wasted 17 years of my life with this which has caused a lot of weakness and pain at times. Did you take your wife through to Switzerland?

@INTiDYN
research was published in 2013 in the journal Pain Medicine.
It is very real. These are critical findings for anyone searching for answers.
Clues as to the possible origin/etiology of the disorder.
#HandTherapy

I am a 79-year-old lady. My FIBROMYALGIA disease appeared at the age of 74, with no hope of a cure from the hospital i looked further for an alternative treatments, a friend of mine told me about Health Herbal Clinic in Johannesburg South Africa who sell herbal treatments for diseases including FIBROMYALGIA disease, I contacted the herbal clinic via their website and purchased the fibromyalgia herbal remedy. I received the herbal remedy through DHL couriers within 8 days and i immediately commenced usage as prescribed, i used the herbal remedy for about a month and 1 week, my condition has greatly improved, all my symptoms including Chronic muscle pain, Abdominal pain, nausea, I am fibromyalgia free! contact Health Herbal Clinic via their email healthherbalclinic gmail com or visit www healthherbalclinic weebly com PLS fibromyalgia is not a death sentence, there is a cure!

Personally I am skeptical of this 3 year old article. I’ve been disabled with fibro for 20 years now along with its evil twin sister, CFS. If this article came out 3 years ago, where are the treatments? What are the options, amputations of both hands? No thanks! Sorry! I don’t buy this article. Based on my own observations and other practitioners, FM sufferers have a high incidence of head injuries and car accidents and/or abuse history. I almost lost my life in 1969 due to a serious head on collision with a telephone pole. Best things I’ve found for FM are high CBD medical cannabis and kratom. I just recently discovered kratom a month ago after the DEA planned to ban the herb to protect the profits of Big Pharma. Kratom works on the opiate receptors in the body but is not lethal like opiates. Kratom also helps me with more energy. Getting lots of sleep and avoiding all stress also helps if you can do it. It’s harder than it looks. Good luck because FM really sucks!

I agree with your statements of FM. I too suffer with CFS as well. Have had this for 4 years. I personally think it is caused from H-pylori or something like it that is in the stomach. Just my thoughts is all. Will look into some of the other suggestions you have offered. Thank you for sharing your thoughts

I have a question to anyone who happens to read this: I have had Fibromyalgia for the past 16 years (I’m 45 years old now), and I’ve noticed over the past two to three years, my hands, from the knuckles down, will go completely white and then numb. Both my hands do this. It only lasts about 5 minutes, and then goes back to normal again. At first, it was only happening about once a week. But now, it’s happening at least once a day. Just last week, I saw the same thing happening in my toes. My question is; is this a symptom of fibro? Should I be more concerned? I told my GP about this approximately two years ago, and he didn’t seem very concerned at the time. My father had a 90% blockage in the main artery in one of his legs, and needed emergency surgery to save his life. I often think about this and wonder if what I have is just a symptom of the fibro, or if I should be more concerned and adamantly ask my GP to have my circulation checked?

Hi Heather it sounds like raynaurds disease often the hands don’t hurt when they are hun but can be excruciatingly painful when the blood tried to reach the ex remedies. I would be demanding that you go do some tests or refer you over to a rheumatologist I pray to go though that you don’t get a rude horrid one like me in Liverpool.

Hello Karen Anne,
Thank you for your reply, your info and your advice! I looked up that disease and it seems I’m showing every symptom. I actually see the Rheumatologist at the end of September (initially to help with my fibro), so I’ll definitely bring this to his attention, and hopefully get some answers regarding both.
Once again, thank you very much for taking the time to answer me, Karen Anne. Gentle hugs right back to you!

Hi Heather. No problems I am glad to have helped. I am also glad that you have found a rheumatologist who will entertain a patient with fibromyalgia. I have recently had a terrible experience with a consultant in Liverpool. Who treated me like trash. I might add that I paid 170 pound for the pleasure of his insults. He said for me to get back to work or I will loose my job, end up on benefits and that will be the end of me. He then followed me up in NHS were he appeared a little better but then sent a separate letter to my doctor saying I was a hypochondriac and would benefit from seeing a clinical psychologist. I was distraught. Had a meeting with my GP who defended him but I am awaiting on a formal response to my complaint. Like I said to my GP just because you cannot measure it doesn’t mean that it doesn’t exist. I am still Seething but hey ho. X

That is terrible you’re being treated that way! I’m so sorry you are, Karen! I get so angry reading and hearing the same from so many people! Makes me wish we could transfer our pain on to these ‘Specialists’ and ‘Doctors’ to then make them realise just how much pain we’re actually in! I’m live in Canada, and when I initially went to a Rheumatologist about my pain 16 years ago, I was made to feel so low. He humiliated me, telling me to lose weight and it will go away. Well, I lost all the excess weight and am worse now than ever before! Makes me so mad that these are the kinds of people ‘treating’ us! I truly hope you can get some answers and the much needed and deserved help, Karen! X

Really, Karen Anne?! Wow! It has been my lifelong dream to visit all of the UK! That is what my daughter and I would love to do together! Go visit all the places where our ancestors originated from! We have good friends who live in Wales and I just wish so badly that it wasn’t so costly to get over there! 🙁 Like you said, perhaps in another life *sigh* lol. Either that, or maybe if teleportation is invented before I die! lol xx

Hi Karen, I don’t usually reply to these but, here I go…….I have Raynauds and my Dr said, there is no cure for this. It does not get worse. It happens more so in cold weather, or in a room with air-conditioning is COLD. It can be scary when it happens. Rub your hands and fingers together, and wear MITTENS, rather than GLOVES. Or as I have done several times..SIT ON THEM, anything to get the blood to return to your extremities;;;fingers, toes, nose. Hope this helps. It is also a side effect of Fibrmyalgia.

FINALLY, some light has been shed on our incredibly debilitating and painful disease. To the many doctors and specialists out there: NO, it’s not “just in our heads”! This disease is very real, and I am hopeful… soooo hopeful that a cure is in sight for us all.

Heather – sorry to rain on your parade, but this post is over three years old. So far, nothing further has been posted by the original person on this subject as to how to tackle it. Doctors are still handing out Anti-depressants like sweeties, which may help to an extent with the pain but are addictive, and if you read the papers, the medication can cause the same problems as what you already have, maybe more so. I have been on Anti-depressants for around ten years already, and use a Benzodiazepine twice a week. The latter helped me stand and walk for a couple of years, but the more you take these medications, the more you need. I also took Pur blocker to slow my bodily system down, but that didn’t help either. The Benzo’s are even more addictive than the Anti- depressants. Some Doctors will say that the Anti-depressants are not addictive, but believe me, they must slowly be tailed off over months. Even if you get better, you won’t know because the side effects of leaving them off, if you do it too quickly are worse than what you have. At the moment, swimming, walking, certain pain killers and Trepiline is the only Arsenal we have. If another post from the original person comes up on this site, I will have more faith!

Hello Valerie,
I actually wasn’t aware that the article was that old! Thank you for pointing that out to me. How frustrating to learn this!
I completely understand where you’re coming from with regards to the Doctors handing out the Antidepressants and various other addictive meds like candies. I too have been given, and am still on a myriad of different drugs to try to ‘help’, but the side effects tend to be worse at times than the actual Fibro! I was put on Cymbalta at one point and that drug reacted so horribly in my system! I took it for three days and had to stop because I honestly felt like I was dying, the side effects were so bad! I’m currently taking (strictly for the Fibromyalgia): Oxycodone, Percocet, Celebrex, Amitriptyline, and Trazodone. The last two meds are to try to help me sleep, as the pain from the fibro was keeping me from that. All those meds help somewhat… better than if I didn’t have anything, but I wish I didn’t suffer so much from the side effects from those meds. And, as you stated, the increasing addiction as a result.
Anyway, thank you for taking the time to reply back to me with your info/insight, Valerie.

Hi again Heather. Thanks for your nice reply! I am just taking Aspen trazodone and Amitriptyline, and both things are known to improve sleep. With the latter, just taking a half, and mostly, unless my mind is very revved up, it gives me eight hours or more sleep. Don’t know what the other things you are taking do, will have to look them up. Cymbalta is supposed to be the main thing which helps with Fibro, but I also couldn’t take it. I have had Fibro for 16 years, and now at 68 yrd old use a wheelchair round the Malls and shops. I can’t walk much or stand for long, but am moving soon to the country where, it being flat (unlike where I live presently,) I will be able to walk more. That is very important, and swimming is marvelous, but I now feel scared of the water of any depth, as my core muscles are not strong any more. That is why exercise is important. Wishing you luck and mostly pain free days. The better your sleep, the better you feel. Wish the Doctors knew more!
I also belong to My Fibro Team, which is a supportive website. If you go on there, I will add you to my team…x

Oh! my word,why are all of you on some of the crappiest meds on earth. None of those helped me,I took those 28 years ago and I almost died from taking all that crap. Get off it and go on muscle relaxers and Naproxen. They saved my life,I was bedridden before I started them. I couldn’t do anything for myself and I had to crawl on the floor,just to get from room,to room. Going to the doctor was a nightmare,my husband had to help me to the car and once I got in the car,I had to lay down. It might sound like,I was a big baby if not for the fact,that I was told I must have a high Torrance for pain. Due to the fact,that I had a busted appendix,ovary wrapped around a kidney and my uterus stuck in place,by adhesion’s. And my only complaint was,that I had a back ache and some pelvic pain and had a fowl vaginal smell,even after bathing. I had just lost,from 300lbs down to 145lbs,when I got sick. I have Fibro,osteoarthritis and scoliosis. I take the muscle relaxers 10mgs 3X a day and Naproxen 550mg 2x a day. Most of the time,that is all I need,depending on what I do and how,I do it. I’ve been taking them,for 25 years and my doc says,heart,kidney’s,etc.are all fine. I do have high blood pressure and they are claiming the Naproxen,causes high blood pressure. But I had it before,I started the Naproxen and it’s actually gotten better,not worse. They don’t,take away all my pain and I still have,spasms,cramps,headaches,IBS,bladder problems,numbness,etc, etc. However,all those things usually are milder,than if I wasn’t taking anything. The Naproxen,takes down swelling,which is where half your pain comes from. Muscle relaxers,help those spasms,cramps,to not be so severe and you’ll be able to sleep. Veins causing Fibro what a hoot,if that was the case,you’d have fibro as soon as you were born,you’d have pain from birth. But I do want to point out,that it is I believe hereditary. Why,because I have a daughter with it,diagnosed at 14 actually before me,although I had it since she was 5. My husbands Mother (deceased)and two sisters,have it. I have another daughter different father,she doesn’t have that,but has high blood pressure and osteoarthritis. Plus,I have two Nieces with Fibro and several 1st cousins,2nd and one 3rd cousin,with it. So check with everybody in your family, and see if anyone else has it,besides you.

Years ago I experienced bleach poisoning in both hands which caused incredible pain. Some time after that I developed fibromyalgia. I woke up one morning and my life changed. To me this article has merit.

Years ago I experienced bleach poisoning in both hands which caused incredible pain. Some time after that I developed fibromyalgia. I woke up one morning and my life changed. To me this article has merit. I wonder was it the bleach? How many times I used cleaning products without wearing rubber gloves. Having said that, nobody has answered the question, what causes FM.

I’ve had this since I was 12 (now 68) it would come and go but there didn’t seem to be any reason what brought it on… I was very active as a kid thru my late 50’s then it hit me hard. No breaks. No let up. But I looked like every other woman out there…. perfectly fine. I finally found a doctor who actually believed it was an illness… just not one many clues. I too was sent to a Rheumatologist that basically said it was all in my head and to make an appointment for a follow-up in a year… my theory was if she was know-it-all who didn’t know what she was talking about a year would not have made her any smarter! I am so excited about this possible breakthrough. Have been praying for a cure/treatment other than pain meds for so many years. Gentle hugs to all who have this….

Just been reading all these comments. I too suffer with terrible hand pain, worse in my right. Awful but I keep swimming. I have now registered for the swimathon 2017 in aid of Marie curie. Will pace myself aNd take it all in my stride

For nerve pain release I Can recommend the specialist treatment with LDN, where Naltrexon of 4,5mg (in my case) helps taking these pains. Lyrica is calming the overactivated muscles, that make me strength again for shorter walks. Still look forward to hear more about the Update on the blood research though. Any Update since 2013?

Makes some sense to me. Shortly after being diagnosed with fibromyalgia, I began having unrelenting pain in both of my hands,right more than left. I was then examined and tested for Rheumatoid Arthritis which I was diagnosed with. So far those two things have been treated in me as separate disease processes. I have recently stopped the prescription (Plaquenil) for the R.A. as I don’t find it slows or changes my pain. It also has side affects ie: irreversible vision changes.

I am tired of people calling me crazy and it’s all in my head. Now that other members of the family have it , it seems like it is not crazy any more. Pain is bad and I won’t take narcotics. Hope the help comes fast……

My hands absolutely change relative to the level of pain I am experiencing in other parts of my body. My right hand is more indicative than my left. It’s great for the affirmation, but it doesn’t change anything. You get used to hanging, if you hang often enough.

The origine of the most cases of Fybromialgia is a disturbance of the slow proprioceptive system. This system controls the tonus muscle and the vascular tonus as well. So , the solution is to manage the proprioceptive system. This is possible by postural reprogramming technics and active prisms.It is what we are doing with sucess from 30 years ago in about 40 thousand patients
O.Alves da Silva M.D.

I have Fibromyalgia and my eldest son was diagnosed with Type 1V Ehlers Danlos. This is one of the worst types to have,involving cardio vascular problems, amongst many other things. The consultant who eventually diagnosed my son’s condition was pretty sure that he had inherited it from my side of the family. I didn’t have Fibromyalgia then but have had it diagnosed 3 years ago.

This all makes sense to me I have been suffering every since I had a traumatic fall and job loss at the same time. It has been five years and only gets worse. Going thru an episode right now and don not know what brings it on. Pills do not work only make you crazy and no one every believe me just looks at me like I am crazy including doctors.
I am 69 years old and for years have had the hands of a ninety year ol (think skin and huge puffy ropes of veins.My hands are in horrific pain all the time, also itch pain.

I’ve said this for years after doing my own research…I was so happy they had a name for what was going on with me I didn’t question it…went on meds that made me crazy then after few yrs of it not working started my own research…I couldn’t understand when I took b12 shots why the nerve pain would go away for a week then I needed another one…Here in Canada you can do your own shots and purchase without prescription…long story I told doctor to check me for pylori…it was positive and I got treated….however the pain was still there…so long story short my body was attacking not only bad cells but the good ones and toxins were now being released into my blood stream because my body didn’t know the difference anymore…the b 12 helps with oxygen in your blood that’s why that helps only problem is checking for toxins is expensive and not covered on health system so if I can get this confirmed then I can get help to rid toxins….I do all the home remedies but need to do more research on doctor to help me

I think this is a bunch of garbage. I had fibromyalgia many years ago when it didn’t even have a name. Although at first many doctors thought it was all in my mind they never suggested it was caused by my brain. When a doctor finally took me seriously he had me take PT which helped a lot. I did not take a lot of different medicines, just something for the pain and would relax for a period of time when it was the worst. Over a number of years the problem gradually went away completely. It had NOTHING to do with some traumatic event.

everything is in relation to your central nervous system, which is in relation to you circulatory system. Think about it for a minute / Pick up an anatomy book. This is new research!! We all go through Tragedy, it is a guaranteed part of life. It could be predisposed and your are blaming it on traumatic events. ,When stress takes hold the body becomes out of balance and our predispositions play in. God knows it happened to me this way.

Hey Dave… Yes, my fibromyalgia started after being involved in a serious violent attack 21 years ago. I certainly believe that trauma is most likely the cause as many sufferers seem to have gone through something nasty prior to symptoms occurring. I once read a book called The Mindbody Prescription by Dr Sarno that was able to shed some light onto one happens to the mind and body following incidents like this. He goes on to explain why psychological trauma causes widespread body pain. Maybe give it a read and see if any of it makes sense to you too.

There seems to be a connection to EDS…Ehler-Danlos Syndrome…wihich is hereditary connective tissue disease….it causes hyper mobility, digestive problems, vein issues..exhaustive fatigue…balance issues…and all the symptoms that FM has….so this can be added to the causes of FM…EDS is often misdiagnosed as FM….plus EDS has 6 varieties of manifestations…could be why we are all so different…

How many people with Fibromyalgia have actually been through some kind of major trauma, a car crash, a major operation, an nasty accident, any of which would have an impact on the physiological effect on the bodies own natural working process. There seems to be a very common link here, have any studies been carried out world wide or in any singular countries to look at this? if not why not?
I would suggest that due to the trauma suffered that the chemical effect and the bodies own survival mechanism create a chemical reaction to alter the physiological effect of the body, resulting in Fibromyalgia………………….
what do you thin

How many people with Fibromyalgia have actually been through some kind of major trauma, a car crash, a major operation, an nasty accident, any of which would have an impact on the physiological effect on the bodies own natural working process. There seems to be a very common link here, have any studies been carried out world wide or in any singular countries to look at this? if not why not?
I would suggest that due to the trauma suffered that the chemical effect and the bodies own survival mechanism create a chemical reaction to alter the physiological effect of the body, resulting in Fibromyalgia………………….
what do you think

As all fibro sufferers know , dealing with it is an exhaustive living hell. I have been living with this for 10 yrs..and it changed my life in the worse way. I was diagnosed by several specialists after my car accident . And have prayed for a cure ever since. I really really hope this is real, and an actual cure is very near. Cuz I want my life back!! I have lost so much dealing with fibro. It’s heartbreaking , I once was a prominent athlete who could do anything . ..now it’s a struggle to conquer the most simplest tasks.
I hope and pray for all fibro sufferers that fibromalgia will be a thing of the past. WE ALL WANT OUR LIVES BACK !!!

Like you Robin I have been suffering for many years and the older I get the more severe my symptoms are. I pray that a cure is found quickly as I would like to enjoy what years I have. I am so limited in what I can do and the pain physio has been suggesting a wheel chair as my balance is poor. I can only imagine what you feel like to have this happen when you are young and had been athletic. Good luck to you and gentle hugs. X

I have been “living” with fibro since I was 10 I cannot even remember what it is like to be pain free I have been given many different drugs that did nothing aside from suffering from the side effects as well as my pain. I have been told everything from I’m a hypochondriac to “she’s just a drug seeker. I was even told I was too fat to lose weight from a doctor and I took that to heart lost 110 lbs and was still in a tremendous amount of pain. I went through about 22 years of this until I was diagnosed at 32 and I was overjoyed to finally know it was not all in my head to now just having doctors blame everything I go to them for as being my fibromyalgia. Really hope this discovery can finally bring the suffering to an end excited at the thought of being pain free as I said I cannot even remember what that feels like!! Bring on the cure!!!!

I also have Fibromyalgia and “anything” that would help ease the (in my case) whole body pain would be excellent … Fibro is something you learn to “live with” but it would be wonderful to wake up pain free 🙂

My thoughts exactly. I have suffered with FM for over 40-years. There have been many studies but no good treatments or cures yet. I will not hold my breath on a cure or treatment as a result of this study either.

I don’t know what to believe anymore. I don’t think they really know what does cause fibromyalgia. And CFS…People who have pain all the time are, of course, going to be fatigued. Dealing with pain all the time makes you very tired. I definitly think there needs to be more research. I have fibro. and Renaulds…my hands are always cold and painful. Definitly need more research.

I just commented to my husband on how Doctors thought Firbo stemmed from traumatic injuries. This “hand vessel” therory would confirm my personal suspisions, as I suffered 3rd degree burns on my hand in ’05, and been falling apart with chronic pain since.

I have the disease and have found relief through Gelatin. I put it in my coffee or Tea every morning and it has reduced the number of flare ups. It contains protein, collegan and over 25 amino acids. I also noted that sugar triggers the attacks along with stress. Keep moving and never give up are my go to cures. the pain brings me to my knees. The doctors treat with pain relievers and drugs which I refuse to take. My disease made itself known after a nasty accident, west nile virus and shoulder surgery.

The report here said: ” researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain…” . I did afterwards read the actual study. Has there been any follow up since 2013? Any updates? I’m actually interested — not trolling!

Oh wow. ..exactly! !! Some people say well if you have FM you can’t work. I know there are people out there that say they can’t work! I GO TO WORK and work in PAIN every day…i can’t wait to go to bed ..i love my bed. People don’t know how much pain a person is in because i don’t complain. I may say i hurt occasionally to some family members but i keep it bottled up inside. I suffer in silence! ! They look at you and think oh she looks ok there’s nothing wrong with her…

Such BS and a terrible way to spread bogus information about a condition that can be researched on real, scientifically sound, peer reviewed journals. This site is 100% pure bad Information. Readers Beware!

I’ve read around this subject as I was diagnosed in 2012. Neuroplasticity, Sarno etc. My conclusion? Many so called experts are making a ton of money from our mystique. No one knows what causes it .. end of. I have now insisted that my medical records show that I do not suffer from fibromyalgia. I’ve walked away from the inevitability that this diagnosis imposes on your life, how people perceive you but more importantly how you perceive yourself, I’ve stopped anti depressants after 19 years. I am no longer scared of the bogey man. I’ve had fantastic support from my local (free) anxiety /depression service and pain psychologist. My medication used to occupy a large drawer and now can fit in a pocket. Believe me, the hand and foot pain started in my thirties and things went from bad to extremely bad . Yes I still silently scream in agony OCCASIONALLY but it no longer defines the incredible woman I am at 65. I’ve learned to meditate for 15 – 20 mins a day. I sing, giggle and enjoy every second. Please don’t think of me as boastful. If this helps someone kick that bi…..h to the kerb, then hallelujah! ! Live well and wisely.

What they talk about in this article and others as well. Is completely different than how my Dr explains FM. They figure it was my car accident is the trigger. And it not an imaginary disease. Its a part of the brain that tells my body it hurts.
If we get stressed out over exert it makes it worse. Winter is worse why because we tense up as soon as we get out in the cold. And my doc says that my blood innfammmation is high (due to either having Lupus or MS which I will be tested for one day. Out healthcare sucks in Alberta) so if my inflammation is high they why don I hurt so much. And yes I know Lupus and MS and FM all have cross symptoms. However I have other sytoms outside the FM ones that indicate something else is going on.
I am also well hydrated. I am instructed to drink a Gatorade a day. So that on yet my salts because I drink a ton of water. So much that I dehydaeate myself. I need the salt. And still chonic pain and fatigue. So theree goes you dehydration theory Chris.
I hope that one day a treatment is found. Currently I’m in 11 different medications. Some are regular and some are as needed. It finding the best combination and finding the right ones you can handle as well.

I agree Chantelle. I was also in a car accident and received a whiplash injury as well as other trauma in the younger years of my life, including emotional and physical abuse as a child, rape at 18, Hong Kong flu etc. I think we use too much of our adrenaline and it causes our substance P to increase.

Well I don’t believe any more anything I read ! It will remain a mystery disease …no one can understand the pain a fibromyalgia Sufferer endures …even a spouse doesn’t understand because so many of us continue to work through the pain you do what you have to. Thirty plus years of suffering no one could guess until at sixty one Ican not push myself through the pain any longer I give in and stay in bed longer and I sit down longer periods of time.

Danny, I read your comment and it was interesting. I have also started thinking about the mindbody connection between fibromyalgia pain and the mind. Have you read anything by Dr Sarno? He talks about Tension Myositis Syndrome (TMS) which is a mindbody condition that he believes includes fibromyalgia as he has had a very good success rate at treating the condition.

When I read the first tiny article I immediately thought here is something! I have been researching Fibromyalgia. It took me years of research to make sure what my problems were. It was a suffering itself and nothing really helped.
This makes sense to me totally!! My hands are the signs that it’s coming. The veigns in my hands totaly change.
The spreading makes total sense too.
Keep in mind how nerves can change pathways
I do have those in my right hand and foot. If I don’t do something about it quickly chaos! Instinct drawn me to gel that goes to a freezing temperature. But add heat (beenbags) immediately. Covered and silence. I have serious nerve damage partly because of wrong treatment.
If I can get to these scientists. I will be getting my life back and my family for first time in almost 30 years.
I pray to get in contact with the with specialists.
Please?!

As fibromyalgia is a syndrome and has many aspects I don’t think it stems from the hands. How can TMJ, Insomnia, IBS etc all be linked to this, it doesn’t make sense. I have fibromyalgia which has been diagnosed by top specialist in the UK who has done the pain tests and apart from some but not all of the “tender points” I have a high pain threshold in other areas of the body. “Now that the cause has been pin-pointed” really? from one study? Seems a bit awry….

My thoughts relate w/ yours. It’s good that they’re doing more research to figure out what causes fibromyalgia, but I don’t think this is quite it. I have migraines, TMJ, chronic sharp pain through chest – back, ribs, pain in hips, knees, feet, and sometimes hands. Tingly sensations, speech / fibro fog, anxiety/depression, GERD, and so on. All of these are not due to my hands.

ITs goddamn chronic dehydration… not enough water and salts in the body. wouldnt kill anyone to give up coffee, pop, tea, sugar drinks and alcohol..diuretics-dehydrate you. junk dead and dry foods dont help either. Take salts and water not just water that will make it worse! SAlts help you retain water, they alkalyze you (not table salt thats poison) Skin thats dehydrated becomes a hell of a lot more sensitive. Muscles become sore, joints become stiff and arthritic with acid buildup… bloodflow is impacted by dehydration. lactic acid removal is impacted by dehydration. histamine to regulate drought in the body causes you pain. dehydration causes depression and anxiety. Im no doctor.. dont believe me. but read up and try it.. all you have to lose is the cost of sea salt. 1/8tsp per liter eaten or mixed. watercure2.org is a good place but laid out badly. I had chronic acute atrophic gastritis. pills out the wazoo.. just needed water and salt. thats how messed up our sickcare system is! PILLLLLLS

Where are the official tests? Who has made these claims. WHO are the researchers? There recently was another article- with different study “results” I wish the paper was backed up a bit more citing specific studies.

Very intersecting article – as a psychotherapist in the UK I see a close intertwined relationship between the body and the mind something that Eastern Medicine has long recognised. A link I didn’t see recognised by those in the medical proffesion 15 years ago when I developed a illness with similar syptoms ME. There was then and hopefully less commonly now: a belief between oposing therories that illness such as ME / Fybromyalga were totally psychological or completely physical in origin. I like to think that some doctors as well as body psychotherapists and counsellors recognise that some of these ailments often reside somewhere in between the body and the mind two parts of us that are inseperatly intertwined .. It’s never a question of someone imagining physical symptoms, the body is creating them but the brain is also registering and interpreting messages from the body – but having been on the receiving end of such views I understand some peoples frustration.. I do also believe which fascinatingly ties in with many comments here that there is also a link between trauma (both physical and mental) and Fibromyalga / ME something hope to investigate more some day..

I was diagnosed with fibro 11 years ago. I was tanking all kinds of meds, all listed in these comments. I believe with everything in me that its inherated. I watched my Dad and my Aunt,[ his sister} suffer for years. I always wondered what the problem was. My dad lived all his life on the couch suffering from mystery pain. No one could help either one of them.

I have suffered with fibromyalgia now for Six years following Two Hip Replacements . I was in a lot of Pain for a year and a half before they found out my problem,bc I was also diagnosed with DDD in my Back and was on Crutches a year before they finally replaced my Hips. But after Surgeries my Pain continued and I’m still dealing with my pain. I had to give up my Buisness that I had & loved doing , My life has never been the same . I now stay home all the time, fighting the pain…

Sufferers please go to wwwfibromyalgiatreatment.com and read this book What your Dr may not tell you about Fibromyalgia. The “Protocol” worked for me n I suffered for 25yrs. Now 5yrs way less pain no drugs, it’s a strict protocol but way worth it. Please try for your own sake. Jan Barker.

I am so pleased to know that the mystery has finally been solved. I was diagnosed with HORSESHOE kidneys in 1987, Fybromyalgia in 2005 and Acoustic Neuroma in 2013. The pain that I endure with the three is overwhelming. I am a person who fights back and I have a strong pain threshold. I am eternally grateful God for His hand that rests upon .me , and the fact that Fybromyalgia is finally understood.

My sister has fibromyalgia & I am sure this was brought on by trauma to her body after surgery in her neck for bulging discs.
Mood can make my sister feel worse but isn’t thT the same for any illness. If you are in hospital & your family or friends visit it makes you feel better. No mystery. I will keep you all in my prayers. Be kind to yourselves

I have suffered with fibromyalgia for three decades now. I get relief from the chronic pain from ingesting medical marijuana I a coconut oil basement which I maker myself from ground up, or bud form. I have far less fibromyalgia pain, and less frequent Raynauds attacks now that I stopped using cymbalta, lorazepam, lyrica, ativan, ssri’s, and all the other pain causing terrible bad medications forced on me. IT NEVER WAS A SYNDROME. SEEK HELP WITH CHINESE HERBAL REMEDIES. I FEEL BETTER. NOT CURED, BETTER.

Don’t get too excited fellow fibromyalgia sufferers. This article has NOT covered the “Mystery” of Fibromyalgia. It has NOT as quoted in the article, “Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure”. It has discussed the “Mystery” of one of the thousands of symptoms – pain. This is no good news – not worth putting out there. Very disappointed with what I read. So what, they diagnosed (sort of) a “mystery” of a symptom. Whoopy ding! They did not even say what the treatment could be, I want to know the SOURCE OF FRIBROMYALGIA, NOT A SYMPTOM. I have been suffering from fibromyalgia since I was 7 years old (not diagnosed until 35 yrs of age) and diagnosed as severe, general (entire body) fibromyalgia. Yes, it will be great to have the pain of these painful symptoms relieved but this is NOT discovering the “mystery” of the cause NOR source of fibromyalgia. After all these almost 52 YEARS of suffering, I still believe it is severe trauma to the body that caused chemical and hormonal imbalances to the body that never returned to being balanced. This is what should be researched, not the symptoms. I am also reading headings “Discovered “Mystery” of Fibromyalgia….”, “Discovered.,,,,,. Fibromyalgia…….” when in reality the article is only about finding a source of A SYMPTOM, not the CAUSE of the condition itself!.

It is very common knowledge amongst the immunologists and others in the field of vaccines that fibromyalgia is the direct result of vaccinations and no other cause.
There are no reported cases in the non-vaccinated.

Riddled with it 8 years now, I’ve been found fit fore work I’ve never been so I’ll. Worked all me life as a window conservatory installer, can’t change me job at fifty tried even went on computer course they don’t wana no sick of bein called a liar, with all the meds Im taking only my son keeps me going

I have FM syndrome for 15 years already. If you had a syndrome it means you have all the symptom’s of FM at once. I was in a lot of pain the first 4 years and could not sleep at all. My muscles was so weak that it was difficult to do my everyday routine. The Dr dont know how to treat my symptoms because I also have porforia and was allergic to most of the medicine that was available for treating FM.

I used to have Fibromyalgia (emphasis on “USED TO”) . . . after 5 years of pain and crippling fatigue I finally discovered a book by Dr. Daniel Dantini called “The New Fibromyalgia Remedy” . . . he is a doctor who had Fibromyalgia as well and cured himself . . . he claims that different people have different causes for the Fibromyalgia, which is one reason why scientists today have not been able to find a solution that works for everyone.

As it turns out, my Fibromyalgia was being caused by a combination of 2 viruses that my immune system had lost it’s resistance to (following a severe crisis in my life).

After taking a 3 month viral treatment all my FM symptoms were gone and I have been pain free for almost 3 years now!

My FMS appeared suddenly, noticed when I left hospital after 1980 car accident. It wasn’t given the “fibromyalgia” tag until 1993. There is a host of variable symptoms and it is systemic, affecting my whole body and mind. This article is so misleading, it is one person;s opinion and nothing more. I also suffered physical and mental abuse from both parents and two ex-husbands. Now I am being abused by a medical community which refuses to acknowledge the complexity of my condition by withholding effective treatment, based on personal prejudices and the behaviors of other people. When a heart attack finally ends my suffering I will be the only one who knows how much all this stress caused it.

@ Roz Sanders, I hear you loud and clear. I also suffer with “fibromyalgia” and feel my quality of life is non-existing. I was a active person, very socially active and a fun person to be around. Now I feel like a zombie with no reason to live. This condition has made me become miserable and with drawn. The people at work only get to see the exhausted side of me and probably think I am someone who enjoys being down, but it is a side that I would prefer anyone see. Being sick is awful and some days I have to think that this world would be a better place without me. After almost 7 years being diagnosed with FM my doctor feels I should go and see Pain Management Doctor (7 years!!). The first appointment I can get is in March 2016. So where is the attention to helping us, the sufferers of this depilating pain.

Proclaiming this ‘miracle cure’ deminishes the seriousness of these illnesses.

As for the disfigurement in the other person’s hands, that would be rheumatoid arthritis. If you had a negative blood test, have it checked again. Many people test negative in the early stages. And, the two illnesses often go hand-in-hand.

I’ve had multiple traumas, from multiple serious car accidents – to – years of abuse from a violent first husband – to – playing hard as a child with four older brothers and their friends, all who didn’t want their little sister anywhete near them – to – working hard for many years – to – sonewhat severe joint and spine problems – to – various injuries through the years.

I heard “It’s all in your head” bull from doctors for decades before finally finding a specialist who understood. I actually cried everytime I went in for an office visit for a long time merely because of the relief and validation.

I am hopeful this discovery will lead to long lasting treatments and possibly a cure. That would change sufferers’ lives forever!

My daughter had the trauma of having 19 inches of her large bowel removed because of a 2lb cyst, caused her surgeon said by one of the worst cases of Diverticulitis in such a young woman [she was 36]. 2 months later the first symptoms of FM started with in her hands. Now 12 years later she has gained 3 stone is a type 2 diabetic and sometimes cant get out of bed. She is one of the strongest women I know having bought her 2 children up alone for the last 26 yrs but even she cries sometimes. I am firmly convinced that this illness is bought on in some cases by trauma.

First of all I have had Lyme disease and a co-infection, twice, since 2004, and now am dealing with what appears to be FM. I have found that when the weather changes I am at my worst as far as fatigue and total body aches. Thank heavens at age 78 I am able to take my pain medication & just go to bed. Did my years of dealing with Lyme disease have anything to do with what I am now experiencing? Good question.

I cured my Lyme disease with the “salt/vitamin C” treatment…go to Lymephotos.com it’s all there. I did approximately 16 grams of salt, 4 grams each time after eating 4 times a day (sodium cloride tablets, 1 gram/tablet, which are pure salt, from Consolated Midland Corporation or CMC as it’s called)and 16 grams of Vitamin C powder (mixed w/orange juice). Vitamin C powder at Trader Joe’s here in California is only about $10 a pound, cheap! Followed that protocol for approximately 4 months, til diagnosed w/ colon cancer, totally unrelated to the Lyme. Stopped the protocol and now 7 years later, still no Lyme symptoms, and I was really bad, lots of symptoms. As for the FM which I was diagnosed with, my dear wife finallly convinced me to give up gluten…and WOW FM symptoms gone in about 2-3 months! Off all drugs!

Ive been diagnosed with Fibromyalgia and im so confused. I feel im going mad as i seem to have one thing after another going wrong. Add that to the fatigue and its getting me down. Does anyone know if itching all over is one of the symptoms of fibromyalgia or am i going nutty!!! Xx

Penny, I am so glad you are finding such relief. Just a little heads-up, I have had fm all my life and I’m in my late fifties. I have found its a cyclical thing. Successful treatment has greatly lessened the cycles but they are still there.
May yours be so small you don’t even notice them.

I believe that I am at the end of my Fibromyalgia & Chronic Fatigue after 2 years. I found that Mickel Therapy lessened my pain to the point where i could go off meds from G.P. Changed my diet, done yoga & walking only to my comfort. Found balance in my days which is taught in Mickel Therapy. I had almost given in to the fact that this will be my life, BUT, when I heard about this Therapy I had to try, and I’m so grateful & thankful that I did. I wish you all the very best, find a Mickel Therapist, you can do it by Skype, God Bless you & Good luck.. 🙂

The medical world is not interested in finding a cure for any disease. If you cure it then you can’t charge for procedures, pills, and office visits. Studying the problem is well and good but if nothing comes of it, what’s the point? Even with all the new information, many doctors treat us as chronic complainers who only want pain and sleeping pills. I’ve be accused of being a drug addict and I’ve never taken opioids or even asked for a pain pill.

Why isn’t this research sourced? No way to check any of the claims made in this article match facts discovered at a lab, hospital, or university. It’s really just more crap I read on the internet. It may have been made up off the top of the author’s head.

It’s been 2 years since this article was published and the fibromyalgia mystery has NOT been “solved.” Its causes and pathology are still not fully understood, nor has it been proven that the pain isn’t psychological in many cases.

As a suffer for 26 plus years, as took years to be diagnosed am so pleased to read this, Hopefully the researches will now find treatment soon, and imagine if a cure is found we could all lead a normal life again

I agree with Linda. Cure it & then I will believe. This ‘breakthrough post’ is from 2013 and it is now 2015 and we are STILL suffering with this horrid condition/disease. MY hands are about the only thing that does NOT HURT. hmmm

lad there is Hope! I was diagnosed with Fibromyalgia and Psoriatic Arthritis in 2008 by my Rheumatogist. She has faithfully worked on these conditions. The Psoriatic Arthritis was a simple enough to control. The Fibromyalgia has been quite a bit more difficult. But these findings may help put a answer out there for those of us that still suffer from this.

I took a course called the Lightning Process. It helped me to stop waiting for a cure and judging myself for feeling the pain (which wan’t real in most people’s eyes). I can see why a lot of people would have a problem with the LP because, as these findings show, FM is a physical and very real condition but it helped me get on with life. FM doesn’t always stay down though and likes to return and remind me how ferocious it can be.

These findings sound like more symptoms of this condition rather than the cause. I would be looking at gut health. Inflammation; leaky gut will upset the fine balance of the body. It disturbs the nervous system, endocrine system and immune system and is a catalyst for many diseases.

I am so tired of the ‘no eye contact’ from medical experts when I say I have Fybromyalgia. I am so grateful for the support I have received from my GP and rheumatologist. For years (since 1996) I suffered the disbelieving stare, but now I have support. Relief is yet to be achieved! The pain is excruciating and can drive you crazy!

Wow I knew it wasn’t all in my head I suffer since I had a dental abcess which nearly killed me !! I’ve never felt pain like this fibromyalgia in my life until then I’m glad this reserch has found an answer !!

And what about those that have never had an epidural that are diagnosed with fibromyalgia? I really don’t think that it has anything to do with it… Every person is different and some of us are prone to diseases over others.

For 18 of the last 20 years I have suffered from FM. I have tried every intervention available to Western medicine as well as several years of Chinese acupuncture, Japanese acupressure, naturopaths, homeopaths, an FM specialist I saw every 3 months in LA. Very little relief. My pain manager won’t even use the word — fibromyalgia. He prefers to talk about myo-fascial problems which do not include the sleep disorder or the cognition issues. Forgive me if I don’t just jump on the bandwagon here. The trip on the bandwagon has been very long and without much relief.

My doctor told me it’s in my head. Not been back to the doctors for 3 years I live with the pain daily and have no one to help or talk to. Find a test and a reason soon please. Or just get the doctors to belive us.

People all over the world encountered an TICK? behave yourself I have been tested for Lyme Disease guess what I DON’T have it what I DO have is Fibromyalgia. I have been working with it on clients for many years and now I get to have it…Lucky eh? Wonder if I contract it? that will be the next nonsense.

Whilst I accept the symptoms of Lyme and a multitude of other “diseases” can be applied to the symptoms see *google* for everything! It is extremely condescending and disrespectful not only to the sufferer but to the doctor and other professional to be told after a lengthy elimanation process that they are wrong! or its Lyme! or its Arthritis or its all in their heads.

I have my own idea of how I got it. I will now work towards managing it no thanks to people like you.

This is from 2013 and they still don’t get it! If the “mystery” is “solved” then why the €¥*# is it still one of the most mysterious ailments affecting millions all over the world? We need current upto date research, we need Doctors who are willing to help those who suffer the constant pain, the exhaustion even after hours of sleep, the loss of self esteem from the inability to function like others and on and on and on…… We don’t need drug companies trying to sell their “approved for all Fibromyalgia suffers” with their side effects that make those of Fibromyalgia even worse, or suicidal, yes, suicidal. I know because one of those expensive ” miracle ” made me suicidal! We need to be treated like the real people, intelligent people that we are, not chronic complainers, slackers, addicts or ” nut cases”.

Since we.don’t really know what fibro is or what causes.it this explanation is as.good as any.of them, and more plausible than you ‘are crazy’.
My questions are why does this become an issue for those of us who are in the 30-40 age range? Granted there are people who are younger who suffer. But most of us report this pain when we are middle aged. Did we suddenly gain more of these blood vessels? Or did we have them all the time but something happened? If we had these extra blood vessels all along, then why did they flare up during middle age?

I’m sure those with fibromyalgia that live in places on the planet where being struck by lightning is statistically more likely than encountering a tick will disagree with you (let alone one with a specific bacterial infection). People that haven’t left that city in their lives, vectors of secondary infection in those enviroments are up to lottery odds. “Symptoms the same as” right, and symptoms for Lyme disease are similar to early onset MS… does that mean Lyme disease or MS doesn’t exist? Similarity isn’t a exclusionary or inclusionary criteria.

Meanwhile all sorts of diseases have to be identified by symptoms and observation. Lyme disease however, has a primary infection stage. Asymptomatic initial infection is particularly rare in bacterial infection, otherwise we wouldn’t be around after the black plague, TB etc as we’d have all these hidden retransmission sources. There would be thinga like parallel infection from blood to blood transmission via donor/transfusion that raise red flags. Sure testing for Lyme disease isn’t great… but how many people test negative AND mistook primary symptoms or don’t remember having them AND hadn’t presented with a rash (as I don’t think you’d f look forget that ONE time you had the flu and a rash) AND had tick exposure that they missed AND don’t have post infection antibodies AND still have symptoms that they never noticed variation during antibiotic therapy for an unrelated infection? It’s all contingent on a “Facebook” understanding of medical science. The fact you can’t see fibromyalgia on a slide is why many syndromes are hard to treat. Meanwhile Lyme has been isolated, treated in verified lab environments… yet somehow people have it and yet don’t, circumventing ALL of those diagnostic protocols. Lyme exists, but so do people that will except a wrong answer to feel like they can understand and act against the unknown as well as those who have something to sell as cases = $$$

All comments are good. Is Hidrocortizone the same as hydrocortisone ? See comment Louise. I have had this condition since I was approx 10 years old and I am 73,. I was first diagnosed with polio..wore braces a short time until my Father made dr, remove them..he said to let me do what I could own my own. They changed my diagnosis to Pollymyalgis..then etc etc…sometime in the 70’s they called it FIBROMYALGIA.I HAVE TRIED ALMOST EVERY SUGGESTION UNTIL BOUT 1980.. No drugs now except aspirin…like none, I exercise, walk, stretch, cry, cuss, pray, friends, sex.& laughter…they all help. 4 or 5 times a year I will take a pain medicine ..if that foes not help..I go to hospital for MEDS and help…

Louise, there is not and never has been one type of treatment that works for every case of fibromyalgia or chronic fatigue syndrome. Many including myself have tried and many still use magnesium, but still don’t get good sleep. I’m very pleased that what you described has worked for you, but please be careful when telling others and making it sound like you have a cure. If it worked for everyone, scientists, researchers, pain specialists and Rheumatologists would know about it and would be recommending it for all FM and CFS sufferers. Good luck with your progress.

The lack of magnesium in our body do not let us go into REM sleep. If you take magnesium chloride you will fix this on the first night! Take it at dinner time. I did and it is amazing! In one week only I was sleeping without any drugs for 5 hours directly.
I’m doing auto hemotherapy in myself and didn’t have brain fog for more than a year now. All the pain disappeared in less than a month. It has none contraindication. Here people do this to increase the immunology and it is excellent.

So…. Auto hemotherapy took all the pain in my body in less than a month. But the fatigue and lack of energy was still there. I did some research and discovered some doctors already know it is adrenal exhaustion due many problems we face in life (divorce, loses, jobs, bankrupts, stress, etc… ) ALL solved with hidrocortisone.

Go to a GOOD modern doctor. Here we call then ortomolecular and into bio-medicine.

After doing that, you will find lots of energy to go to the gym or walking. Your life will be back!

Learn everything about auto hemotherapy on internet. No one will tell you about these cheap things…. you know. It did miracles for me. NONE pain… well can say I am free of pain in 95% what is wonderful! I can use my high heels again…. A woman will know what I mean. 🙂 No pain on my feet anymore.

Well…. here everybody knows that FM is a lack of Magnesium Chloride in our body and it has a lot to do with Adrenal Exhaustion, too. So, hidrocortisone solves all the fatigue and magnesium takes all the pain, helps sleep, etc…. One just need to do some research….

I find it difficult to believe this because every 6 months it is claimed that fibro is caused by this or that. I have the pain, brain fog, chronic sleep problems, lack of energy, etc. and as far as I know I don’t have extra of nerve anywhere in my body.

I have Fibromyalgia and also have a blood disorder, my blood clots way too easily. I’m on constant blood thinners. I wonder if there is any correlation there since my veins often hurt anyway from the high number of clots I’ve endured and the bouts of cellulitis I’ve had in my legs. I hope that a cure can one day be had. I’ve been in constant pain since I was 28 years old and am 42 now.

Fibromyalgia is also linked to UARS – Upper Airways Resistance Syndrome which is airflow limitation during sleep . This is diagnosed during s Sleep Study that measures Obstructive Sleep Apnea and RERAS.

there may be a simple ‘cure’ which we have used often over the past 16 years as Light & colour Therapists. We use a Bioptron and when first treating a patient for Carpal tunnel (on the forearm and base of thumb) she reported later that her fibromyalgia had also lessened.
So a simple 4 minute light treatment can get the cell memory to repair itself, as it does with almost any health complaint.

There will be those who may scoff but be aware the author has also successfully treated a premature baby born without formed lungs, an elephant with arthritis, a rhino in difficult birth, numerous stroke victims as well as Olympic Gold medalists.

The only thing that keeps everything alive on this planet is light and in 1903 a Danish doctor won the nobel Medicine prize for light therapy – a pity it took 82 years for the Bioptron Linear Polarised Light to be invented.

I can not help but notice that this article was dated 2013 and we r just now seeing it…. I have been suffering from the pain for a long time… Endless tests and blood work because there is no explanations as to why the severe pain is felt in areas that an organ is located… My pain is also compiled with endometriosis… Takes days sometimes weeks for a flare up to subside… But I refuse to take daily meds to get thru the pain… The last thing I need is a bad liver and or worse side effects from meds…I just hope that they can find a cure… I hate that my kids can not enjoy time with me as much as they should… Sometime the pain from just a tiny hug from my loving children is just to much to bare… Here’s to hoping!!!

I have always had severe pain in my hands, and did not know the reason of that pain.
It seems hopeful but, quite honestly, I am suspicious because I have suffered and am still suffering so much with the pain of fibromyalgia and for so many years, and physicians have tried so many “treatments”, without any result except when I take really strong medicaments, that eventually we stop believing that future will be better than today.
This disease destroys our self-esteem, we no longer can make plans because we don’t know how we will feel the next day.
It is really a depressant disease and very hard to live with.
Just hope these investigators find the cure for the millions of persons suffering with Fibromyalgia.

I agree with the sufferer in the above message. I too, have the pain, sheets sometimes rub against my feet and the pain is excruciating. I get very little sleep, one foot I swear is broken. I have Neuropathy and it is extremely painful, I do my own acupuncture and it helps some, plus the jets in the pool loosen it up some, but the pain is always there. I don’t bother asking for anything as it ends up with me feeling like a criminal if I should have a drug that eases some of the pain. I could get addicted to it they tell me. I wonder what the doctors would do if they were in this pain. In the morning it is like breaking my feet in half to be able to walk to the bathroom. All this, after have a 5 yr. bout of Morgellons, that still nips at me all the time. Scars, and pain, and life goes on, I wonder what pain killers are for if I cannot have them?

The first thing that alerts me to an impending flareup is shooting pains and swelling in my hands, as if I have excess fluid in them. This is extremely interesting and I’m going to ask my rheumatologist about it the next time I see him. Thanks for this article.

I have suffered from this disease for over 20 years, and am tired from morning till night and beyond. If my arms are uncovered and cold air blows on them, I suffer from intense pain and the only relief is to wear a sweater when I go into any place that is extremely cool. My feet,hips, and knees as well as my hands ache and have spasms which keep me awake or wake me up when I finally do get to sleep. I have many sleepless nights as well. Years ago, my feet were so bad when I woke up in the morning, that my husband would have to help me to the bathroom and many times help me get dressed. After I got on my feet and got dressed, I managed to get to work and get through the day. A cure would be very acceptable to me. Please let me know when that time comes.

Although I am still in pain constantly, I have had improvements in fatigue, and a reduction in my muscle weekness. I have done this by cutting out pharmaceuticals, which weren’t working anyway, and changing my diet, to mainly raw food, with a mixture of herbs and spices. My daily veggie smoothie is a god send. The only thing I found to relieve the pain isn’t easily available, and thanks to the government of the 1920’s was made illegal! So I’ve learned to just tolerate it, and live with the pain!

Nope cut out gluten like i di and completely cleared my macular degeneration which was supposed to be incurable !!!! going blind totally was supposed to be my future ??? i cut out flute and now my eyes are perfect and my gum disease has miraculously disappeared too ?? x

I realy need some positive information here. too many years of pain and fatigue. I will do or take almost anything to relieve this misery.
If this is real relief some one please start a site with information and contacts to push research and support.

This explains a lot to me in what my daughter is going through, she is 17 now but she started going through these problems when she was 11 12 an no docs would say she was dealing with this, hence now she is dealing with full on anxiety, depression and feelings of doubt, when she was 16 we went to birmingham hosp and straight away they told her she was dealing with fibromyalgia, so from then on we had something we knew we were dealing with, we are still battling this problem and we and everyone with this problem needs your support please help us x

I do not believe this article. I have had this condition since my teens (I am now in my 70s. I have had every diagnosis and treatment. I am as ill now as I ever was. The only thing that has helped at all has been cymbalta and arthotec. I eat health, do water aerobics three times a week but am never without serious pain.

Another red flag: should not someone drawing inferences about a condition be aware of the very basics of the condition?! Like, for instance, the FACT that Fibromyalgia is NOT an inflammatory condition?

Sloppy, sloppy science… or sloppy, sloppy reporting (take your pick). There is absolutely no scientific basis upon which they can infer causality. They have not discovered THE CAUSE, they have discovered a physiological anomaly amongst SOME Fibro patients that MIGHT be a factor in SOME Fibro symtomology.

Another demonstration of quick, but wrong, conclusions scientists make. I have no doubt that the findings are correct. However, these findings are the end result of a process, not the cause of the problem.

It is still our subconscious brain that is in control of our entire physiology. So yes, it is all in the brain. If you want to know how the brain really controls our health, you might want to take a look at the amazing informative and easy to read blogs at: http://pmamninded.com.

I have suffered the most severe pain every single day for just over 4 years, to the point you don’t want to live anymore. I’m just turning 30 and have less mobility than someone going on 130!
A cure would be the most amazing thing ever. Let’s hope it’s soon I already feel like I have missed out on so much of my life

had this illness over 50 years would be lovely to find a cure oh to be pain free just one day would be heaven i too have ostoathritis of the spine hips now knees i am 73 years of age so what more can i expect . i get bad aura migrains too now a bad tendonitisn in my right hand having operation august

This is insane. Fibromyalgia is an autoimmune disorder resulting from viral infection. It is not and never will be anything other than that. The simple facts are that REAL people have a REAL disorder and need REAL research based on what we know and have come to understand about our own bodies. This will lead to REAL treatments that are not experimental and will give us a REAL LIFE not the shadow of the ones we lived before.

I have never had a viral infection!
Nor a traumatic event nor a serious (or minor) accident so how do I have Fibro?
I literally woke up one day and couldn’t move my arms. Fast forward 8 years and I’m in severe pain constantly, I manage maybe (if I’m lucky) 2 hours sleep a night and I spend every morning when I wake in tears because it feels like my neck broke in my sleep.

I have suffered for 28 yrs and am told i am also suffering from osteo arthrites.i am fed up with taking percoset and morphine for last 12 years. I am 71 and my mind is like a 30 yr old.but wish my body could stop sufering.

I see a lot of different doctors for the many problems I have & I’m just so fed up with doctors rolling their eyes when I tell them I have Fibro. I think you should send a memo to every doctor in America so people stop getting belittled.

Our daughter was diagnosed when she was 14. I was an overprotective mother with a child who was a hypochondriac according to most. Hope real relief comes soon for the sufferers of this painful, draining condition.

My oldest brother was dxed with fibro back in the 70s by Mayo Clinic. The only thing they did for him was give him a prescription of NSAIDs and told him to exercise.
I am not so sure I totally believe this article. I think there is more to this since it affects our muscles and tendons not just our skin.

I was diagnosed with Fibromyalgia, in 1988. I was 46. I believe I had it in 1968, when I carried my 4th child.
In 1988, I had to tell the Army Dr’s what it was…they never heard of it! lol
I understand that many people cannot even function @ all. I feel so sad for them. I am fortunate, that I have a very high Pain Tolerance. I guess having 7 children is proof enough of that! lol
I will pray for all of us, that something good will come of these findings! Sometimes it takes a few years for Whoever To Act On Medical Findings! ;-(
Good Luck To All! Hugs,,.”Babe” 😉 And Special Thanks To My Good Friend Carol for sending this to me! 😉

Article 2 years old and still nothing for a cure EXCEPT some form of pain killer that may make our suffering better or the same, but ultimately will cause something else to wrong with us, it would be nice if this is all it is, but I’m not buying it until they develop something that works for all of us which in my opinion will never happen. There are other individual contributing factors and a lot of times the doctors are like it’s arthritis or fibromyalgia or something else that’s similar in nature, although something totally different may have been the cause leading to these diagnoses. I’m 45, have suffered most of my life since childhood, have given up on all medications and shot treatments for pain, and simply feel like it’s something that we have to deal with in our own ways (good or bad). Support is not our friend and we’ll be lucky to have someone in our life that will love us anyway. Prayers to all of us, God bless!!

I have been suffering for 6 yrs now. It took 4 yrs for anyone to listen to me!! I swell up head to toe. I feel like my neck and spine are killing me. Red knuckles, burning, numb, tingly or painful hands. Pain in my shoulders, knees, ankles and toes. It used to come and go. Then eventually it stayed for good. I live it every day.I’m 35 and feel like I’m 95. I used to be an avid outdoors person with lots of energy! I had been the bread winner in my family for years. I’ve lost just about everything. My great job, my spouse, my sense of freedom and accomplishment. But I haven’t given up or lost the fight. This news brought me to tears. I hope and pray that this will help us get our lives back!!!

I do believe this ever since I was about 10 I’ve had red blotchy palms and I explain my pain as my blood is burning and I can feel my blood pumping and I have lots of tender tender points that hurt all the time I’m looking forward to trying their new cure

I have had Fibromyalgia since 1990!! Long before it became overdiagnosed. Only YOU (and God) KNOW IF YOU TRULY HAVE IT. 25 LONG, HARD, PAIN-FILLED YEARS it didn’t take me very long before I KNEW!! I read this but I DO NOT TRUST IT!!

My wife has Fibromyalgia and she is the one that is the bread winner. I feel for her every day as she hurts and I know she hurts from how she acts and responds. Worse is the impact on her being able to work. Loosing days has placed our family into a hole that we just can not seem to get out of. It is why I am now looking for help to help relieve the stress for her. This link (gofund.me/wpyp63k) is to that. I look forward to a cure like any one…but until then we all have to do what we have to to get by and help those we love.

Best therapy I’ve seen actually work has been the high-dose Guaifenesin researched by Dr. St.Amand out in California. Theory is that people with fibromyalgia do not process phosphates out of their body normally, it builds up and makes the lumps in the tissues. Guaifenesin (OTC Mucinex) has the side effect of making the body excrete phosphates. Susan has been on it for almost 25 years, is almost completely cleared the lumps and painful joints. She has to be careful what she eats, any herbal food with salicylates will block the action of the guai. St. Amand has a website http://www.guaidoc.com It works, and it’s cheap.

I too was put on Prozac 15 yrs ago, all it did was give me suicide thoughts. I stopped taking it and the suicide thoughts went away. I only took it for a short period of time, no lasting effects. I moved to Arizona because I could no longer tolerate N.Y.’s cold weather which triggers flare ups. I fare must better living in a hot environment. Having said that, I still get tough days, although I get more days of waking up not sick or mild flare ups. Moving here was the best decision I made to help myself.

When the pain became unnearable I saw a specialist who put me on prozac. I didnt realise as it was a slow decline but the prozac made me angry, frustrated and gave me severe anxiety. I lost it at work and was suspended, I was taken off the medication and started feeling more myself. However the destructiom it has left in its path is unrecoverable from. Being put on prozac destroyed me, I hurt the people I care about, I lost my reputation. My boss did everything he could to ruin me, because he couldn’t understand that I was working my arse off every day, in agony, putting in extra hours and doing my best but all he saw was someone who lost it and had time off. This illness has ruined my life and I am currently desperate for help. I can’t take living any more.

I stand beside u in a life of chronic pain. Fibro, tmj, MS, daily headache, cerebral aneurysms. It’s ridiculous. I hav stopped being social. Even going to doc appoitmnts cause added pain. I do have prescribed pain meds but my life has grown to be small . Hang in there!

DEAR HANNA UR COMMENTS MADE ME SO SAD. SAME THING HAPPENED TO ME. ALL THIS TIME DRs HAVE PUT ME ON STUFF I WAS TOTALLY ALLERGIC TO. LOOK UP ON GOGGLE “MAYO CLINIC” AND WRITE THEM A LETTER. NOT AN EMAIL IT WILL GET IGNORED! TELL THEM YOU NEED HELP. EXPLAIN IN DETAIL IT HELPS TO WRITE AND WHO KNOWS THERE ARE ANWERS WE JUST HAVE NOT FOUND THEM YET. HANG IN THERE. XXOOKK

I laid on bed with pain in my throat and no voice . I have been finally told after seeing various oligts that it’s my brain telling my throat it wants to work like this. So does mean that it’s ive too many blood vessels that’s causing me these problems

FIBRO FLIPPING MY ALGIA WAS AROUND WAAAAY B4 CELL PHONES AND COMPUTERS TRUST ME! SINCE THE BEGINNING OF TIME IT’S JUST THAT NO ONE REALEEEEEEEEEEEE HAS DONE RESEARCH. JUST SHOVE PILLS IN YOUR MOUTH SO U SHUT UP!

I doubt this very much. I agree with Rebecca, although not the way it was presented. I, too, am tired of the excuses and the constant pain. Getting upset makes it worse for me. Most certainly has to due with the brain. I was put on anti-depressants before being diagnosed with fibromyalgia. I just want some answers.

Hm, I dunno. This would tie into Chinese Medicine as a possible cure, but how do you reckon the correlation of this + Raynaud’s Syndrome plays out? My hands and feet are cold and numbish 90% of the time, leaving me to think that I have less blood vessels in my hands/feet. Just sayin’.

that’s bogus it has nothing too do with blood vessel in youre hands who came up with that crap, as a sufferer I know dang well it isn’t that! come up with a better excuse… it does have something too do with having viruss like Epstein barr, I do know that! it also has too have something too do with the cns so it is brain related duh!

What a rude way to communicate your thoughts in a public forum. I didn’t understand a single point you were trying to make because of your insolent presentation. Obviously you are feeling poorly and I am sorry about that. But maybe you could try to have a tiny bit of respect for scientists who are trying to unlock the mysteries behind this disorder for the benefit of us all.

IF U R ASKING ABOUT THRYROID AND R/A YOU JUST HAVE TO GOOGLE IT. OTHERWISE I DON’T KNOW WHAT U R ASKING FOR BUUT I CAN FIND OUT. JUST MAKES ME MAD WHEN THIS PAGE SAYS “FINELY SOLVED” IT HAS SAID THAT FOR A FEW YEARS NOW. IT IS NOT SOLVED!; 🙂

just last week I went to see a new doctor and he they did the same thing, but it could potentially be a virus. currently just waiting on my medical file to be sent to him so he can review previous lab work and request new ones if needed. but the possibility is there.

DEAR CARLA: I HAVE DONE SO MUCH RESEARCH ON R/A IF U GOOGLE THYROID DISEASE AND RHEUMATOID ARTHRITIS YOU WILL BE MAD BUT ENLIGHTENED. THEY CAN BUILD A DRIVERLESS CAR BUT THEY CAN’T FIND A SOLUTION TO R/A 🙁 SO SAD. R/A IS AN AUTOIMMUNE DISEASE AND DOCTORS THAT SAY YOU HAVE R/A AND THEN DON’T CHECK YOUR THYROID ARE IDIOTS! THE DRUGS OUT NOW CAUSE BLINDNESS AND CANCER IN A LOT MORE PEOPLE THEN YOU KNOW. I HAVE HAD IT 21 YEARS. IF THEY HAD CHECKED MY THYROID I WOULD NOT BE IN SO MUCH PAIN. FIND A DOCTOR THAT ISN’T BEFUDDLED BY QUESTIONING. WE MUST BE OUR OWN ADVOCATES! HERE IS HOW YOU TYPE IN GOOGLE “THYROID DISEASE AND RHEUMATOID ARTHRITIS, THE CONNECTION” GOOD LUCK AND I WISH I HAD AN ANSWER. XXOOKAREN

The reason statin drugs are still ‘out there’ is because it is one of the biggest selling drugs for companies like Pfizer bringing in profits in the millions.
In Australia, when questioned (reported on) by our ABC’s ‘Catalyst’ program over a year ago – there was a “put down” by our Heart Foundation who also succeeded in having it ‘pulled’ from the on-line catch-up programs. Interestingly, i found that one of
the Heart Foundations biggest sponsors is Pfizer — go figure!

Why don’t the researchers just continue with Dr. Paul St. Amands discoveries and research. Check out his book, “What your doctor may not tell you about Fibromyalgia”. He’s already done the research, for over 50 years in fact, and he’s helped himself and thousands of others. He works out of Marina Del Rey, California.

Both, my wife and I, had long periods of intense pain in our legs when I happened to read an article in our local newspaper cautioning people who were on various forms of Statin drugs widely used to control cholesterol. The article contained a warning of potential damage to muscles with sustained use of a Statin drug and that; further it urged the FDA to “…require that an FDA-approved medication guide be distributed to patients filling statin prescriptions, advising them to immediately stop using the drug if they experience muscle pain, tenderness, weakness or tiredness. Finally, drug companies should be required to send ‘Dear Doctor’ letters to all U.S. physicians about the risk of muscle damage due to statins.” To finish my story, after stopping the use of our latest Statin drug (Simvastatin), within 2 weeks our pains began to reduce in intensity and within a year our legs were pain free. My point being that perhaps the pain that people report having may not be the result of fibromyalgia but, if they are users of Statin drugs, it could be the drugs that’s the cause.

Hi I believe 100% about the danger os statins I can NOT tolerate any form any shape of thia poison suppose medixine to help you onw way amd and killed you in amother way so I don’t know why it is still out there It caused me pain pain and more pain in my bones also my liver function went high.
LOOK THE WHOLE PICTURE BEFORE YOU GET LABEL BY A PERSON THAT IS CALLED A DOCTOR AND TOOK MAY BE 5 MINUTES TO GIVE YOU A DIGNOST they don’t care. I started studying every detail of things that I do and things I don’t do and believe me it make a difference.
Best wishes to all!!

HI ROXY :SOMETIMES HIGH FAT IN THE BODY IS JUST THAT-GENEIC AND STATINS OR NOT IF LETS SAY UR DAD HAD HIGH CHOLESTEROL- U MAY TOO. ESPECIALLY IN WOMEN NOT SUCH A GOOD DRUG. READ ABOUT IT EVEN DOCTORS DON’T KNOW ENOUGH THEY JUST GIVE U A PILL & SAY SEE YA NEXT TIME! WORKS FOR SOME-NOT FOR MOST. I THINK WHEN EVERYONE ON THIS SITE COMMENT ON SOMETHING THEY SHOULD REFER TO AT LEAST YOUR COMMENT 🙂 OR SOMETHING IN THE Q & A SO US OLD FOLKS CAN REMEMBER – LOL 🙂

Not sure if I have fibro or not. All I know is that my arms and legs hurt so bad I can’t walk or even dress myself. My white blood cells are extremely high during a flair up and I am treated like a drug addict even though I don’t even have pain meds. My heart goes out to anyone that is suffering with this!

Since the beginning of scientific inquiry there has not been found one single cure for one single non-infectious or dietary disease. They can treat the symptoms or burn or cut on you, but there never is a true cure. The reason is quite clear, science is in total denial that our attitudes and emotions effect on our health.

Being an acupuncturist the “head acupoints” through out the body show tenderness and swelling, just exactly as the diagram above shows. But also all the fibro patients I have worked with have a common attitude of being stubborn and refuse to listen to reason. They tend to be hyper-sensitive to the slightest slight, even if none are intended. They also tend to be professional victims blaming others for whatever is wrong in their lives.

And no acupuncture does not cure it either, but it does temporarily relieve the pain. For all of you fibro sufferers that want to send me hate mail, I rest my case. You need a personality makeover to heal, there is no other way, unless you want to take the risk and have nerves cut.

Wow, that’s incredible that you can categorize all fibro patients that way. I have an incredibly positive outlook on life and yet somehow that hasn’t affected my pain level. I choose to take the very minimal amount of narcotics as possible and only on days when flare ups are so bad I can’t even stand up. But I still manage to laugh and play games with my family.
Something you may want to consider when treating these patients is that they have been trying to deal with widespread whole body pain probably for years before they were ever even diagnosed. And then they were told the debilitating news that there is no cure and the prognosis is to learn to live with the pain. It is disheartening and can break down someone with even a positive attitude and outlook on life. It takes time for people to learn to live with this. I used to e able to hug and snuggle my sweet little boy as much and he could stand and when he would run and jump on me we would laugh about how he tackled me. Now he has learned that he has to ask me how hard a hug he can give me. Because if he is too rough on me the pain will last for hours. How sad that my sweet 6 year old can’t show me how he feels because it hurts me when he hugs me too tight?!! There are huge adjustments that have to be made to life and that can be hard and depressing and some people cope in different ways than others or you.
Might I suggest that you learn a bit more about the struggles others deal with before you judge and spew your negative thoughtless energy around. It has been my expieriences that when people go places for treatment they are at a higher stress level, and nearly always only talk about their ailments because the treating Dr or physician or acupuncturist asks them…”how are you feeling today?” You won’t see people at their best because they aren’t there to see you because they aren’t fine, otherwise they would have no reason to come to your office in the first place.

annie, did you even read the article? “hand story doesn’t even match up”??? That is just plain ignorance. I could give you plenty of examples of how and why that makes no sense, but I’ll just quote one line from the article instead; “…but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.”
You may regard this article as false hope, but please spare and not dash those that would prefer to have hope!!!!!!

@annie: Many of our sensory nerves are incorrectly mapped by the brain. Add to this,sciatica, which often tells our brain that there is pain in the buttock, knee, heel or foot, when the sensation is actually caused by spinal damage. Most of the few places which are correctly mapped, is in our skin, and pain in our muscles is very likely to be a symptom rather than the disease. A build up of lactic acid is very plausable, though also just a symptom of the disease.

Sciatica is not “caused” by spinal damage. It is a person’s attitude that causes it. I cure it all the time with my patients, No needles, drugs or therapies. I just talk to them and find out what their unfulfilled goals are. Once found the relief is instant. Fibro is more difficult because the patients also have an “attitude” of stubborn refusal to listen, they play the professional victim game and are offended at the slightest provocation even if none is intended. Fibro patients require a personality makeover before they can be healed.

You have no idea what you are taking about. I woke up one morning like I had the most incredible flu virus, body aches, migraine etc. etc…… & it never went away. It was no “attitude” which brought on this pain.

I had it for over 40 yrs. When I went in to have my partial knee surgery the surgeon had to clip the main nerve that is the main problem with Fybro. The Main Nerve runs through your back and crosses over your knee. Since my surgeon clipped that Nerve I do not have any Symptoms of Fybro. Thanks Dr.

im not buying this article at all. fibro means tissue, myalgia means pain. it is a hyper sensitivity of the connective tissues in our muscles and joints. so this hand story doesnt even match up. im saying this is a false hope story.

I have had many many surgeries on my hands because my major pain was arms and hands. I have had 30+ surgeries total on my body because doctors just did not know anything. I hope it is truly in the hand, I have some skin left that has not been stitched on. Ha ha. I decided not to take all the pain meds because I had a doctor say as he walked in the exam room…”I am not giving you pain meds”. I never asked a doctor for pain meds. I have gotten them but never asked. The stigma with fibro needs to stop.

I have severe pain in my hands and had lots of treatment to try cure what the pain I suffer in my hands. The skin splits on my hands like knife wounds from doing little tasks. I spend days using steroid creams to try and heal the wounds and sometimes end up having antibiotics as well as the wounds can become infected. I have had sore hands ever since the fibromyalgia started. I want to get tested now for this condition as docs in Dublin say they can do no more for my hands

All these years I’ve been suffering and not only have I had family and friends question wether I’m a hypochondriac but also doctors looking at me like I’m a loony now they can see I am in pain and its flipping real ………

I was diagnosed with fibromyalgia and chronic fatigue in 1995. I began the guaifenesin protocol developed by Dr. St Armand and now do not have chronic fatigue and rarely have fibro symptoms. I don’t see any mention of his protocol listed. It has worked for thousands of patients.

Its just my humble opinion but from the solid research, not anecdotal reports, this is a placebo cure. Hey, if it benefits someone, great, but the double blind studies show it does nothing. In fact, they did not even want to do the studies as they felt the claim by St. Armand were not to even be been taken serious that this cough syrup would cure CFS and fibro.

If you can find an “upper cervical SPECIFIC” chiropractor, you will find out the difference. No meds will cure fibro….another “humble opinion” from personal experience. Placebo cure is not what you want, you want to get to the cause.

Well I will be reserving my judgement until there is a lot more research done on this. There is so much out there that just isn’t true, so much that is down right blalant ploys to buy this cure and that vitamin and I will not be spending one more penny till I see some legitimate research. I have seen people spend thousands of dollars on snake oil and it makes me shake my head. Even if had a placebo effect I wouldn’t be so upset but so much of it is harmful, not helpful so this gal will wait and watch!!!

Oh my. So many responses!!!! I could rant a full reem about this but all I really desire is a cure. This paper was doing the rounds 2 years ago but where is the miracle cure?
If anyone of any scientific standing bothers to read what sufferers really feel contact me and I will whole heartedly most willingly participate in clinical trials (so long as it doesn’t involve yet another cocktail of useless drugs)

I would like to know how many patients were tested to confirm this theory? I agree that FM is not “all in the mind” as many Dr’s say. It seems that this debilitating disease is taking over the world. Almost daily I hear of new people being diagnosed with FM. If this theory of the excess blood vessels and nerve fibers are true, is there anything that can be done or spesific meds that can be taken to bring satisfactory relieve? I am tired of Dr’s prescribing many different drugs and many different combinations of drugs that makes you feel worse and like a zombie most of the times and it is costly. I had to throw away many costly drugs because it caused side effects. I also had many procedures done to try and alleviate pain but that only worsened the pain. The problem with FM is that there are so many different symptoms. I struggle with chronic pain, migraines and headaches, IBS, chronic fatigue, depression and the worst of it all is the severe spasmic muscles. I had many physio sessions with no relieve. I don’t even want to touch the topic of exercise as many sufferers know that it only aggrevates the symptoms. To conclude I think that many sufferers would love to know the exact cause of this disease and have some hope of a cure.

The article is written very much like it’s a definite answer. It does seem to me to be the results of one small round of research. I for one hope it is indeed the answer, as I would love to live a “normal” life, but I can’t help but feel apprehensive that the article may just get people’s hopes up on the chance that further studies show it is only in certain cases of FM.

I am so glad!!!! I wish and hope that there wil soon be a treatment or something for us. I am going bad of painful muscles and headaches. I feel like i can not go on like this anymore!!!! I hope the cure can help us all!!!!!

I’m convinced that my fibro was from mono – a mega virus that compromised my immune system. My hands are fine. I’m a dental hygienist & still able to work @ 67. But the fact that someone is doing research on the cause is a definite positive.

I have been diagnosed with fibromyalgia for many years on top of other physical problems do to 5 car accidents. I will share a couple things with you guys that helped me personally, Epsom salt bath, supplements such as celery seed extract, tumeric, ginger, magnesium, b-12 w/ folic acid and cherry. I also make arnica muscle sticks which helps with the inflamation and muscle spasms. I hope this helps all of you find some type of temporary relief. People who don’t suffer from fibromyalgia have no idea of the pain we go through. God bless

Do you take that by injection or pills? My holistic doc wants to give me this for Lymn diease.They are so many people that have Lymn are diagnosed as fibomyalgia. I was also but knew it was more than that .I also suffer from Toxic Mold.

I was ‘diagnosed’ with FM some 18 years ago. It’s a word that basically has become an easy diagnosis in that it is cheap for the NHS in the UK to throw this at you with their limited budget. I have since found out I have an underactive thyroid, severe B12 deficiency, and adrenal insufficiency. All this caused by antibodies attacking my body. Took some pushing for this diagnosis and lots of tests but last year, I wasn’t going to accept this ridiculous fibromyalgia word. I showed borderline on most tests after asking for print outs of results, and insisted further tests were carried out.
My question to all those who have been diagnosed: IF your doctor told you your child had cancer WITHOUT doing full blood work/scans etc, would you accept this diagnosis and allow chemo and radiation to go ahead? No?! You would want PROOF that your child had cancer. Same with this. ‘We can’t prove or disprove.’ Why?….because it DOESN’T EXIST. You ARE ILL for goodness sake. You need the right diagnosis AND medication to make you well again. 16 years I’ve put up with this and all along, it’s been actual ailments, EASILY rectified with medication, WITHOUT being drugged up on amitriptylene.
Please go back to your doctor and insist on further testing. You deserve to be well.

i have fibromyalga i have had it 7 years im 32 years old i can not play with my children i cant get in or out of the bath on my own i cant cut my own food i cant walk for more then a few min because of the server pain i can sleep a whole night as i have to turn some days i wish i was dead and if my kids wasnt here i would be . i cant have sex any more because of the pain and people think this is in the brain really you think i want to be like this 32 years old and cant do any think for myself and all the comments it cant be that bad i beg to differ i had 6 children with no pain releaf and im telling you i would rather be dead then live like this every day

As a Fellow sufferer I sympathise wholeheartedly with you. Although my symptoms are not nearly as severe as yours I know exactly what you mean and each day seems to be worse than the day before. I have had this for some years without the official diagnosis and being told it was pretty much all in the mind. I feel glad somebody knows how I feel and understands the pain involved with this complaint. Hopefully a cure will be found soon.

Hi have had this now for 12 or more years , the pain is something that you can’t put in to words don’t let anyone tell you it’s in your head this pain is very real as we are the ones that live with it some days I can’t get up or even walk or sit, but I make my self get up & just try it’s up to you to try to live or let it rule you its one of the hardest thing I have to some day ,but we need to live I whish that it would be nice just to get up with no pain but I live in hope .I live up north they have something up here that is called the p m u pani management unit @ the hospital it is one of the best place to be seen they doc that get what I say about pain which has helped me lots just remember to live your life as much as you can don’t let the pain rule you be strong with it

Couldn’t of put it better. If we was believed we wouldn’t be so I’ll either. Let medical profession feel our pain. They wouldn’t wait 7 months for the next app for the pain clinic. To be given 1 poxy injection. When you need 4 or 5 waiste of effort. Not worth more than 100 every 7 months

Hi Maria,my heart goes out to you I have had this for 15 years I am 63 now it stole the life I loved my Husband betrayed me because he missed our old life too it is really hard for everyone,your children love very much just do a little with them and tell them you love them very much, My youngest son is my rock he helps and motivate me when I feel down. Take Care

My partner suffers with fibromyalga and our doctors made him feel like it was all in his mind until my partner finally spoke out and said there’s no way anybody is going to get up and say I want to be in pain like Iam in all the time . He carnt even hold his granddaughter for more than 5 mins he is 38 years old carnt play with his children his life is a total mess he’s on 6 different types of pain killers and still no release from pain so please don’t make anyone make you think it’s all in your minds because it’s not .

Fingers crossed that a cure can be found. The pain I have now is changing me from a fun happy person to an introvert as socialising is out of the question. I have become increasingly immobile and spend time on my own as I don’t want to burden family with my problems x

I HAVE TRYED TO SEND A MESSAGE ABOUT THE HORRIBLE PAIN I HAVE DELT WITH GOING ON THIRTY YEARS ULNAR NERVE RIPPED FROM MY SPINAL CORD TO MY RIGHT ARM THIS WINTER HAS BEEN THE MOST HORRIBLE I EVER HAD FOR PAIN MY WHOLE LIVE HAS BEEN DISTROYED BECAUSE OF THE PAIN WOULD THIS HELP ME.

Fibromyalgia is one of many symptoms of Mind Body Syndrome or TMS, as described by Dr. John Sarno. All of these “discoveries” about the physical source for the pain do not negate the fact that the brain controls the physical. We can not feel without the brain. This does not mean that the pain is “all in the mind”! They are real physical sensations. However, the cause is not due to some physical deficiency but due to the brain choosing to send pain signals, usually for psychological reasons.

“They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunt.
“…we had evidences that the blood vessel endings could also contribute to our conscious sense of touch”

What? An arteriole-venule shunt is an abnormal connection between a vein and an artery which has absolutely nothing to do with nerves. There are no “blood vessel endings”. Blood vessels are in a continuous circuit to distribute blood – no “endings”.

I am really happy they did progress in fibromyalgia research. As soon as we understand the biological underpinning of a disease we are happy it is not a psychological mistery anymore and call it a “real disorder”. This is stigmatising towards psychiatric disorders. We should take everyone serious if he has pain no matter if we allready undersood the biological underpinnings or not. I am a psychologist and would never tell my patients they are crazy if they suffer pain which is not (yet) explainable by biological causes, but trying to find ways to cope with the pain. I am shure in some years we will have more understanding of biological underpinnings of manys psychiatric disorders. And then we wont consider these disorders as psychiatric disorders anymore but will still keep stigmatizing those people suffering of disoreders where we have not found thebiological underpinnings yet.

Jackie Waite 48 iv been diagnosed with Fibromyalgia my Arthirities Dr has put me on Lyrica and now taking 300 ml of Lyrca twice a day. Find it does help with pain. I take Cymboltan. too 60 mg as well as mobic, I take Calcium and Magnesium to as wel as Mobic. Last week hit a bad week. I hate the doggie brain the most I am so excited that be a cure.

Glad to know they are making progress. Sure hope they’ll come up with a treatment that Medicaid will pay for, unlike so many of the treatments that used to work for me, that are now disallowed… Thanks a lot Obama.

I’m 68 y.o. and I can’t remember any days without pain. So I think I’ve developed a way of life and coped with pain.Now I have better days then others. I still teach full time and love my profession. But lately I had acute pain in my face and head due to a problem in my
cerebral vertebrae and my doctor prescribed some neurontin (pregabalin 50mg in the morning and 75mg at night). We had to work at the dosage and with the side effects. It took time but finally we solved that part of the pain. I missed one or two pills and believe me I’ve been fast aware that this little one was in control of the pain. That problem was solved but I still struggle with the rest of my body’s pain. I still have overwork muscles syndrome. I sleep with pain killers because I’m a workaholic and do not want to bother people around with my state. Voltaren became my best friend. But I know the side effects of it. When you are in pain you do not ask yourself any question about it.Life goes on and it is still beautiful. I keep myself informed of the new discovery in that field…. maybe something will come out before my end of my venture on this earth.

lyrica is a nerve med. It does work for fybro to a point. The weight gain and foggy days stink though. I have tried it it helps with the pain but gave me thrush everytime! With the side effects were not worth it for me. but it is def. worth a try as many people dont have those kinds of side effects!

My dr prescribed a medicine that is given to fibromyalgia patients for the severe migraines that I have been having. He wanted me to try it to see if it would help the nerves and muscles in my neck, I also have spinal stenosis in my neck. I just wondered if anyone had ever heard of or taken “Lyrica” as a migraine medicine.

I have suffered with this illness for over 30 years now. I have gone through so many doctors and most of them would prescribe Valium for my instability, they said over and over it was all in my head.It , took me years to learn how to cope with this disease. I have learned to pace myself so I can do for myself at every level. I finally have a good doctor who has given me a life with a cocktail of medications that allowed me to go back to work after 19 years. I worked to mornings a week and it has brought me a quality of life to a certain degree. It has been a long battle and I am so happy that it is finally understood and there is now hope for a cure. To all the people whom are suffering from this I say hang in there!!!

I completely understand why people feel put down by doctors. Over the past three months I have been diagnosed with vulvular cancer and have had two surgeries since that time. The docs couldn’t diagnose it because they were thinking it was all in my head! I started visiting doctors in 1997 – ended up firing my family doctor because he would actually argue with me and tell me that there was nothing wrong with me. I told him at one point that I had lived inside a my body for over 50 years and I k ow when there is something out of the ordinary going on. He still would not listen to me! For those of us who have diseases that cannot be seen from the outside life is very hard – we have the anxiety of the pain itself and the stress of people who are doubting what we are saying! I feel that I am very lucky to be alive – the doctors sure didn’t help until now! Now I have the best surgeon God has put on this earth!!

My hands always bother me– this is great news- my heels have always bothered me also… wonder if there will be a simple easy to treatment without drugs to harm other parts of the body. Lots of time, I warm up my hands and feet and feel better.

I have had ( Fibromyalgia ) now for over 18 years, and I wish they would come up with a cure ! It has been so painful and continues to get worse as time goes on. Nothing seems to help and more in did not start in my hands. Are these for sure facts?

Mine started in my spine too when i hear it starts in the hands i think my hands are fine its getting harder to have a doctor each month to give you your meds alot of doctors now willnt take my ins and i had my last pain med doctor appt the first of may and i took morphine and oxys and if i want to see a doctor its going to cost me 300 a month so i have to go cold turkey on my meds now

Hi after suffering Fibromyalgia for just over a year now I am delighted to know that this could be a cure for the future. I was in so much pain at the beginning of my illness that I was sure I had a stroke at first due to not having the ability and strength to move my upper body and some pain in the legs with my hands closing in on themselves also not able to open a shower or turn on the tap. When I first visited my Doctor I was surprised to be told that I was 1 the wrong age (57yrs) and wrong sex(male) and if I had been a women it would possible have been detected???? I was put on medication of Steroids along with tablets for my bones and also a tablet to take each day for my stomach and another tablet once a week for the stomach to counteract. I have had so many blood test in the last year and visits to hospitals it was very scary. I am now reducing the tablets 6 weekly and I hope to be free in the coming months of the medication if not I am happy to continue to take the table medication for life but hoping this news will stop al that in the future
Look to the future guys .

The best we can say thus far about Rice’s findings is that these vascular anomalies are a physical feature of FM that may be common among patients.
While we’re happy to see proof of any physical sign of FM, it’s a two-edged sword. Imagine you have a car accident, a rear-ender, and you develop FM (This is common, as I know from my law practice.).
Now imagine you are tested for the presence of these venules in the hand.
If you don’t have them, you’ll have a worse time proving you have FM than patients do today (and that’s bad enough, believe me).
If you do have them, what will the judge think about your claim that a bump in the rear created these unusual vessels in your hands? Your lawyer will pull out a lot of hair, trying to find an expert who will vouch for this!
Proving an accident triggered FM has always been a nightmare. Misunderstanding Rice’s findings could make that a lot worse.

What’s the cure? Surgery? Yet more poisonous drugs?
How does this explain why 4 out of 5 FMS patients are female?
Why don’t people with these weird hands develop FMS earlier in life?
How does excess blood flow in the hands translate into “hyperactivity in the brain” (first time I’ve heard of that FMS “symptom”!)?
Does this mean that if your hands aren’t sore, you aren’t a fibromyalgic?
What about the zillion other symptoms that fibromyalgics reliably complain of–how does “mismanaged blood flow” cause those?
I’ve been dagnosed with FM since 1992 and completed a study of 100 women with FM that was postered at the world FM convention but I need to know a lot more before this makes any sense. This has to be one of the worst-written quasi-medical articles ever.

Well said Eva. There are many unanswered questions in this article. I hope someone reads your informative and intelligent questions and is able to give some of the details you outlined. I hadn’t thought to ask any of the things you asked and am glad on behalf of myself and others like me that you did.

Thanks for your comments and the Albany article, which is far more informative. It’s great that FM patients can finally feel vindicated; it’s amazing that it took 25 years to prove the disorder is real.

(I am not calling FM a disease because I am skeptical that it is. My experience tells me it’s a set of symptoms that is becoming more and more common and is linked to endocrine disruption. That avenue can explain a lot of the observations of the past about FM, such as gender skew, variability of symptoms, and so on.)

The next question is, how will this observation about the shunts in FM hands help heal the patient?

‘hyperactivity of the brain” I read as neurological overstimulation… which can happen with ANY chronic pain, whatever the cause. Whether the root cause of fibromyagia is in the brain or elsewhere, it is the brain that processes the sensation, and so the constant stimulation registers in and affects the brain. (whether that’s what the writer meant, I can’t say, but it’s what I got out of it.)

Problems that have to do with circulation are OFTEN more prevalent among women, because our circulation is very different from men’s…. we are more prone to cold hands, likely for the same reason…. our circulation is core-centered, for the biological purpose of keeping babies alive. (I wonder if there is a link between fibromyalgia and blood pressure…. are people with HIGH BP less prone to it?)

I was hoping that the article actually had some solutions, though understanding is at least a start. frustrating that it’s not MORE….

So relieved to there maybe a cure,i have suffered with this for at least 20 yrs or more my friend and family thought it was in my head,the goverment would not do anything for me .I fell asleep driving my car to work glad no cars were coming in my direction as the car swirl i woke up.I was relieve nothing happen,I quit my job.Takeing many pills nothing to help me. Ida Close -Robb

THE MOST SENSIBLE ANSWER I HAVE EVER HEARD. FITS AND MEETS ALL THAT AILS ME. OVER 20 YEARS OF ON AGAIN OFF AGAIN SUFFERING. HAVE NEVER FALLEN FOR DRUG TREATMENT AS MY DOCTOR AND MYSELF THOUGHT IT WAS NOT WORTH IT. AFTER ALL THIS TIME AM NOT CONVINCED THAT IT IS JUST WEAR ,TARE, ARTHRITIS, OR MENTAL. DEFINITELY TAKES A TOLL ON YOUR MENTAL STATE. NOW? HOW DO WE SOLVE THIS?

I am so glad to know that we now can prove that this pain is not in our head, it is very real. I have suffered more than 20 years with this terrible and debilitating pain. I will speak to my doctor at the pain control clinic to see what they think. Thank God for this breakthrough. Keep up the good work

Yes, who can sleep? Who can exercise? I try but some days, I can’t even put my socks on. I know for a fact it’s not in my head, I can feel the pain, so it must be real. I don’t like being in bed a lot, but I don’t have much choice.
Yes please, I’ll take a cure.
Sleepless in Ottawa.

Is this a flipping joke!! Get more Sleep, Get more exercise!! Wish I could sleep more, exercise as much as my body will allow until fatigue sets in and the pain stops me being active. At least one good thing has come about by this research “it’s Not in Our Heads” lol I could have told you that along with all fibro sufferers!

TotAlly agree wi u its all good to say what we should do but the fail to understand we can’t because of fibro I keep getting offered depression tablets how bout trying to fix the problem instead of trying to find the quickest solution to get me out the surgery cause they have no answers

Please take the time to read this.This may help you.I was diagnose with Fibromyalgia and Chronicle Fatique .I suffered for so many years .My life was called no life.There are days i just wanted to die,if it would not have been for my love one i am telling you i would not be living on this hearth today. I started taking this ,it is not a drug ,they say it’s just like food. It is call Marine Phytoplankton. They do sell it at the Pharmacist .Talk to your pharmacist about it or google it.You will be amaze of how many others got cured on it. It is the talk off all Natural Doctors and Pharmacist. My DR Peter Ford made me and my husband laught ,he said take this little green stuff that taste like seaweed and i will call you in 4 weeks to see how you are feeling.( just letting you know that i take mine in half a cup of pure orange juice so it is not bad to taste.) Then he look at me and said i may never need to see you again in my office. I looked at him and laugh and said in your dreams . I started the medication the 26 of Mach 2015 and this is what i have to say to all my Fibromyalgia and Chronicle Fatique friends. I noticed in the first week my hair getting a bit greasy for maybe a week now my hair looks more healthy then ever, then the color of my face was just went i was a kid nice rosy colors. I stated feeling more alive waking up in the morning singing and thinking of what could i do today ,making plan to get up and do something, the past 5 years of my life where the worst in bed, day and night with pain i can not describe .All my friends ask me what happened to me , they say wow your skin is so nice and you look so happy smiling all the time,one friend said did you win the jackpot ,i said yes it is not call money but i got my life back. I was on a lot of medication and vitamines as you know thats what they prescribe you, i stop taking all my vitamins and medication except 1. I am talking to you this morning at 7 30 in the morning and it not a beautiful day outside but it is a dam good morning for me, being happy with no pain.I can not wait to get out of the house to do something . Believe it i am crying this morning reading what i am posting for you ,Happy crying because of all the pain i suffered for so many years and with this little green stuff i have a life. I always read the post but i never replied but i really need to share this to tell my story. i remember all the doctors saying to me there is no cure, you just have to accept and live with the decease .It is my 8 th days being alive again,it does take time ,we are all different ,it took me 3 weeks some of you it can take longer on the Marine Phytoplankton but please do not give up on this ,i am telling you if it work for me it could work for you just be patient.The reason i stop a lot of my medication are that went i woke up in the morning i felt so good that i forgot to take my med for a couple a days went i started them again i felt like crap so sense then i stop taking them and i feel great on just taking this new Marine Phytoplankton. And do not fool yourself it is not because i stop my medication that i am feeling better i try stopping them before and i was crashing ,more pain and more sleep so yes it if for sure this new Marine Phytoplankton. If you read on the Marine Phytoplankton it is for a lot of illness not just for Fibromyalgia and Chronique fatique,what do you have to lose it is not a drug just a food that come from the ocean. Have a great day i know i am finally getting one,i am calling my very good friend Monique and i am going to enjoy my day out of my cage name the bed. Thanks for taking the time to read this ,i hope this can help someone in need .Get your life back. (:

This is very exciting news for me, I hope a cure is found soon. I was diagnosed in 1998,and have continued to be my quadriplegic husband’s main carer. At times it has been a real struggle for me to continue. Hopefully,although I’m 64yrs, Icould have a few pain free years before I kick the bucket, it would be bliss to be pain-free

this is wonderful news ,my questions are ,is this going to be available in canada ,iam very interested in the out come and any new meds to combat this painful life, i was diag in 2004, iam 52 not one single day goes by that i dont feel pain ,iam tired all day all night ,i work five days a week as a home care house keeper ,very phi work , and iam ok doing that 8 hr aday ,its when i stop moving thats when the pain starts right away, my meds are lyrica , tylenel , iam ready for some thing stronger , iam ready to quiet my job ,

Oh yes, I’ve heard all the “in your head” stories and had every imaginable and painful test they could think of for about 50 years. One doctor even told me I had “the suburban wife syndrome,” which meant I was bored – yeah, right with home, trying to keep up with and organize activities/lives of two kids (3 if you count hubby), 3 dogs (two canine pregnancies), dance troupe member, etc., etc., etc. Bored, right. And all these years, I’ve wondered why my hands hurt so much. And still, I’m eagerly waiting for the cure – what’s the ETA?

I coNor acted this disease via a viral infection in the brain. It left me severly disabled ( there are different levels) and on a DVLA life award. I was healed and came out of my wheelchair, gave all my benefits back and my life has completely changed. Nothing is impossible with God. Any new developments are welcome to those still suffering.

I’m trying Magnesium Dimalato and I’m having excellent results. No pain in the ENTIRE BODY.
No fog… no muscle spasms…. no hip pain…. no joint pains…. nothing!!! And I’m sleeping lots better…. There is NONE side effect or contra indication.
Only people on hemodialises can’t use it. Magnesium is the salt of life! Do your own research on internet, please….

They have found parts of what has caused this. This information has been around for a couple of years now. I wish I could remember or had saved where I saw that they had found something they thought was the genetic marker that caused fibro, that one is pretty new. Keep up with the research as much as you can. But also look at general Chronic Pain management, Its a b*tch to do but you can make things somewhat easier.

I suffer with my C56 & C57 vertebrae and at times can be so painful that I cannot move. Prescription painkillers will not even take the edge away. I find taking1000 mg of Paracetamol and 400 mg of Ibuprofen relieves the pain more so than Codeine, Tramadol, Solpadol and many other pain killing medication.

The DEA has gotten so strict about allowing doctors to treat patients with pills due to the pain pill epidemic that has gotten out of control. I live in a small town and since these new regulations from the DEA heroin has finally showed its presence. An a lot of doctors won’t treat patients from fear of getting in trouble. Some people that do need pain medication can’t get it and that is just wrong. Tylenol and Ibuprofren don’t treat chronic pain.

MaryAnn, not sure what u meant re: having pain meds but not narcotics. I am in similar situation as u, my sympathies! My GP is kind and prescribes pain meds/narcotics …I try to get by on the # he writes for. I am thankful for him. Totally agree wth if we were dogs they’d. put us to sleep. Take care .

Narcotics??? Had this disease for nearly 30 years. I lived normal life with pain meds. Thanks to the medical community that does the bidding of the DEA, I have found no doc that will prescribe narcotics for pain. I also have arthritis and numerous painful conditions. We have a PAIN disease. Why not treat it with things that work for the individual. If I were a dog they would be kind and put me down.

The Author has misunderstood the scientific report. Just because the hand was tested, doesnt mean its just from the hand. They believe, but have yet to run a larger trial to verify, that a subset of FM sufferers can have as many as 10 times the normal amount of capillaries all over their body. This could be the overload of sensation that leads to the neurological changes now seen.

Anita arnell, You are so right, they are so off track on this one i think.I have fibro and other disorders for 16 years, suffer horribly, if you get this message and want to know somwething that truley will help you(it’s a miricle-a God send for me) go to a group on facebook called Kratom(new and current users) read all the posts there, and consider kratom for fibro pain, help with sleep, deprpression and all the other nasty crap that goes with it…i hope you get this messagem cause this will help you

Thats absurd,im not dr at all but a blood vessel in ones hand? Ok come on thats like sayin pms is from my pinky toe on my foot!!! Iv suffered with this crap for 17 yrs been on every med,had every test,percedure,done every excercise thats been invented. Im only 47yo,iv had onsomnia for yrs&iv slept full nights waking up whet i cnt move.iv got several bulging disc,arthiritis thru out my spine,in my hips,shoulders&hands.I hurt so bad that i dnt ent anyone to touch me,my skin hurts,joints,bones,everything. So this comin frm a blood vessel in my hand is so “IN THEIR HANDS! and another TRIAL&ERROR case for us patience that wil fall to be ther guinea pigs!! Just my opinion. Have a nice day. THANKS BUT NO THANKS,DOC! GODBLESS!

Honestly this sounds like a bunch of scrap. They can’t come up with a real reason so they throw a bunch of stuff together and expect US to believe it because they have no other explanation for it. It’s just like saying “it’s all in your head.” Thank God that I have a doctor that listens and is helpful.

I am also sceptical about this article but appreciate that fibromyalgia is ‘not in the head’ as somebody said to me just last week. This made me angry. She has no idea what it’s like to have fibromyalgia. A book I read recently on chronic fatigue syndrome which I also have as a result of Lupus was very helpful in that it promoted routine and exercise which Joan Ross also found helpful. I am trying to swim in naturally hot springs more often and walking more often which I think is helping me.

I have fibro and have had it for many years. And this sounds like a bunch of hooky to me. There is a huge list of things fibro fighters live with every day, and i don’t for one minute think that it can be summed up so easily. For me I believe these experts don’t actually have fibro.

Well this is weird as I also suffer from fybromyalgia & I have what looks like burst blood vessels on the palms of my hands that no doctors av seen can explain 5hay dnt know why I have them or what as caused it I would love to find out more information about this & would like to send u a photo of my hands but don’t know how to on this link

I found this article very interesting as I am a fibromyalgia sufferer whom the Dr’s prescribed anti depressent etc. Meantime I heard from someone that if I took Magnesium and Zinc it would help . I have done this taking Ulitmag which has Zinc in it and Calmag which has Calcium in it and since then slowly the pain disappeared and I weaned myself off all the medication. I do walk as often as possible and can now climb stairs whereas before I could hardly step onto the curb. I also have been doing Pilates and Stretch excercises. Hope this is of help to someone.

My fibro started from an injury that affected my shoulder and In turn affected my hand and arm then spread all over. Also by co Incidence I also had a personal crisis happen so all thoughts. Lent towards brainFor the cause. I think this could have some merit

Source?
Who publishes something that is health related without providing their sources???
Besides it is wrong to announce that a mystery has been solved based on only one “unlocked” source.
This is not journalism.

I had a lot of fillings removed as well to rid the mercury. Because my immune system is so shot, most of my teeth abscessed and I had them all pulled and now wear dentures. Hard telling if removing the mercury helped or not.

Since going gluten free and not eating foods containing high levels of mercury, such as certain fish and other sea foods, some of my FM symptoms decreased by 70%. Also some allergies has disappeared or lessened. I also had tooth containing mercury fillings extracted (12) as I could not afford to have the fillings removed. I can now use my hands like I have not done in years.

I have just had ten fillings removed, some of which had been in place for sixty years. I am not feeling better yet, as It can take forty to fifty years for the body to get rid of it. Haven’t got that long, I am sure, so am chelating. First you take a challenge test of two tablets, and then three hours later, you take your urine. Then, it gets tested in various parts of the country. Then you go on chelation therapy. It is very hard to chelate the brain. The Mercury gets stuck in various organs of the body, so you must chelate.

I just wish some would find an end to this debilitating problem, sleep would be great if you could get pain relief but it’s a vicious circle. Your dead tired but the pain keeps you awake as for exercise well who can exercise when your in that much pain and your limbs are so swollen that you can hardly move.3

I pray that this opens the door wide open to wisdom understanding and ultimately a cure for Fibromyalgia. Lord let it be so. Bring up medical teams to investigate this and produce life giving cures to all fibro suffers. May it not be put on the back burner nor something that the government fda or unbelieving doctors or pharmeceuticals would try to squelch before it is even considered a real possibility of an answer resulting into the cure. Yes & Amen.

Folks try reading “What Your Doctor may not tell you about Fibromyalgia” by Dr R Paul St. Amand, MD., & Claudia Craig Marek. On the web at. http://www.fibromyalgiatreatment.com
I have been following this “protocol for 4 years now and I find it works, so don’t wait get reading. Wishing you better health.

Ithink this is amazing,i have exreme pain in my hands as well as other parts of my body.Sometimes it feels like my thumbs are fractured,I was prescribed epilepsy drugs although i am not epileptic .I refused to take them,it is shocking really. But this is good news.

Chronic back pain for years that is made it difficult to do much of anything. I hope they find the answers for pain. Have already had several facet ablations done but they don’t last more than 9 mos to a year. It helps but doesn’t stop all the pain.

My Dr has made me feel like I was going mad they have even stopped my tablet for the second time in. Living with this pain every day and am finding it very difficult to stay working as I’m in so much pain may be they will give me them back and stop making me feel this way

I am skeptical until a treatment is successfully formed from this knowledge. I have had excess pain since I was a child. Being tickled was fun but hurt at the same time and if I said something about it I was told I was too sensitive or being a brat. The first pain I remember was in my feet. So this break through needs to be something more before I will be excited.

They need to understand WHY the patients have too many blood vessels. What did they eat/drink (diet pop, sugar, GMO’s), vaccines, etc., that could have caused too many blood vessels. You don’t just wake up one morning and have too many blood vessels.

I have a theory that works. I have been able to help hundreds of people defeat fibromyalgia. Read my theory on Page 19 on my Free E Book. You will find it at http://www.saltt.com.au Click on the information tab, then Free E Book. Happy reading!
Sharyn Cook

I experienced the same indifference from Drs. But..what are we really to believe – this new study or the last one I read describing a large clinic in Phoenix, devoted entirely to Fibromyalgia. They are sure that it is caused by an infection somewhere else in your body, so how can it now be solved when they each think that they have the answer.
I am puzzled.
Shirley

i was one of these people who got told it was all in my head and told to take the antidepression tablets and go away i am glad there have been a break through and now people who are not depressed wont be given tablets they dont need

hi i was told in 1902 that i had fibrostic that’s what they called it back then & the doctor put me on pill’s & i had 3 young’s kid’s & workin & i couldn’t handle the pain & my husband could handle me so i gave up the pill’s & he rubbed all of my boby every day & night sometime’s he had to pull me up in the bednow i think i have it in my chest i’m shagged

Phil, I am with you 100%! I am now 62 and had FMS for at least 25 years, along with other health issues. Over 5 years ago I was diagnosed with diabetes, and being obese and unhealthy I can’t say I was surprised, but unhappy all the same. After starting on the meds (taking my total to 12!) and quickly gaining about 25 more pounds and feeling worse than ever, I had a total melt down. I had seen “Forks Over Knives” in the past, and I knew it was time for me to act or face the consequences. I jumped in with both feet and totally turned my life around. Lo and behold, in less than a month my blood sugars were normal, and over the next year I not only lost over 150 lbs and got off all the meds, but my FMS symptoms reduced to nearly zero! Through my research and experience I’ve come to learn that we are meant to live close to nature, and when we do we will be healthier! I only eat what comes from the earth, no processed food, no animals or their products, nothing man-made at all, including free (taken from the food they belong in) oils, fats, sugars and flours, (unless I grind them myself from the whole grain, which I do rarely). Five years later, I feel better than I ever have, and never even have a cold! It wasn’t easy at first, but I can’t even begin to tell you how worth it it was, and how much I love it now! People stress over all these weird diets and eliminate this and that on the say so of some author or controlling lobby with an agenda and end goal of making $$$ and manipulating our ideas! Fads come and go, but nature has and always will be the basis for what we are all about! Man can never hope to top that! People want to hear fat is good and meat is healthy so they don’t want to believe the truth, but they need to wake up to the reality…they are sick and getting sicker!!! I challenge anyone to improve their health, and possibly their fibro, in just three weeks (though that usually takes longer) by taking the 21 day vegan kickstart! I have no affiliation, and they aren’t selling anything! http://pcrm.org/kickstartHome/
Please stop believing the silly pseudo-science BS that sells books and products, and THINK! Do your own research from the REAL facts! I just want everyone to give it a fair try, you have nothing to lose and everything to gain!

this article is too ‘far out there’ for me to believe it is valid. The only reference to specifics was Danish scientists without the name of the trial/lab institution, university or names of any scientists heading up the study. In 2012? the big discovery was a link to a type of virus also found with prostate cancer. That article had back-up sources to cross reference & covered by reliable well-known media sources. Causal links I’m aware of include trauma, food & chemical sensitivities and possible chronic Lyme Disease. Immune system over reactivity explains episodes of flu symptoms. Mood swings with black holes of depression for me are critical. I’ve been ill for 20 yrs. Treatments are a crap shoot from day to day and many not affordable.

I would caution that, while this is a positive sign, there are too many ‘could’s and ‘may’s in the above paragraph for my liking yet. I’ll be watching hopefully for my wife, but in the meantime I do caution against running too far with this news – the research is ongoing, and science is a process of theory-test. Once this has been tested a lot more, I’ll be more excited.

I have had Fibromyalgia for over 20 years and am on Nsaids, Morphine, Anti-depressants and anti-seizure drugs. I would love to be cured but somehow believe this will never happen. Please prove me wrong. Currently living in Spain where I moved because I was house-bound in cold wet England. Heat certainly helps with mobility. If there is ever a trial started for cures, I would be very willing to take part and get off all these drugs.

Kim, I’m A neg. also, but I never thought fibro would be connected to blood types. I thought I got mine when I was around 14 and fell from a second story porch. The railing gave way. I always had my arms out of the covers at night and above my head. Weird, I know. After the fall I had to have my arms under covers.

I’m O pos. I do think this condition has a lot to do with our spines and a flaw in the signals to our bodies. I have an old whiplash injury, endured a traumatic childhood and a rape at 18. I also find that smells are more intense to me. There are so many variables, but most of us have experienced a trauma..we tend to be animal lovers too.

Both my hand pain was due to Carpal Tunnel in both hands… so I had surgery and they are all fixed! No more pain! I do, however, have Fibro pain all over but mainly down my spine and lower back.. and a bad case of Cognitive issues! I’m having a hard time understanding the connection between the hands and Fibro pain and cognitive issues.. ?

I was told by a highly-regarded rheumatologist in 1982 that fibromyalgia was the result of inadequate stage 4 sleep (deep sleep after REM). He was right. In my experience, when I get enough sleep, I do not have fibro, and when I can’t finish my sleep cycle, fibromyalgia hits me really hard. It’s one-to-one, cause and effect. I don’t know how that could be related to this blood-flow-regulating nerve ending thing, but maybe it is…

OK WELL THEN NEXT YOUR GONNA SAY THAT CARPELL TUNNEL STARTS IN THE ANUS. WELL LET ME TELL YOU I HAVE BOTH WAS DIAGNOSED 18 YEARS AGO I DO NOT TAKE THE PAIN MEDS AS THEY WILL RENDER ME UNABLE TO WORK… I CHOOSE TO WORK AND NOT GIVE IN THERE TRUELY ARE
DAYS THAT I WANT TO GIVE IN THEN I REMEMBER MY SONS AND KEEP GOING!!!!!!!

Big Pharma will develope a drug that may ask the problem, sell it at a rediculous price and the problem will still not be solved. Proof in point is cancer treatment, how many billions have gone into the drug developement with still no cure….I think this still needs to be looked at further, as Fibro affects so many people each in different ways, it’s really become an umbrella term of sorts.

I had ME/Chronic Fatigue Syndrome for 3 years. Couldn’t work or do anything; was in searing pain. Went back to training as a Clinical Hypnotherapist/ Psychotherapist; where I responded immediately to treatment. I’ve helped patients since (also with Fibromyalgia) to get back to full time work and are pain-free! if you want to know more please contact me at paulmorton777@hotmail.com

I’ve had Fibro & Chronic Fatigue for17 years. This research is interesting but I’m not convinced at all. I do believe that blood vessels are involved which effect every part of your body,but my legs are worse than my hands . Maybe because my hands are smaller ? From the beginning though my hands have been very sensitive to touch ,cold mostly . My feet are also sensitive . Is this the same blood vessel problem ? I’d like to know to can a lack of something like magmesium effect your blood vessels ? Still not a one size fits all problem! I’ll keep searching thanks.

Ellen, for sure the lack of magnesium would effect blood vessels and all cells! Not that this may be your only problem, but I can tell you for sure that the lack of circulation causing my tremendous stove pipe legs, frozen feet and lack of mobility in all extremities has been triggered by the lack of magnesium–and has greatly improved since the continued use of magnesium oil! Research blood vessels and magnesium for more answers!

Congratulations on your continued health Phil you are very lucky,however, it does not always work.Having been meat free since 1982 you would think if your theory was correct regarding diet I would be well. Not so. I have arthritis as well as fibromyalgia and nothing seems to help me be pain free. I am interested in the hand theory as I have had problems with trigger fingers, pulled muscles, joint inflammation and carpel tunnel in both hands with no explanation as to why it has happened. I also have a friend with MS that was a gymnast and nutritionist and hers has advanced at an alarming rate and she now is in a wheel chair and in hospital permanently.

I’m fibro free now!!! Seriously, and my arthritis is no longer confining me to my home!! MAGNESIUM OIL– honest to God– this is and has been my new lease on life! Check it out on Facebook under Magnesium Oil .. or any site that you can— just get on the oil and don’t look back!!!

I have had lupus which is an autoimmune disease. Never had to take any medication except a muscle relaxer here and there over a 4 year period. I had my second son in July, 3 weeks later I became ill. It wasn’t my lupus they said it was fibromyalgia. I have lost 45 lbs after having my son and I’m still a walling pills left and right. So the ones who say lose weight and exercise are wrong. I’m battling two chronic illnesses. Losing weight is not helping.

To Phil See – as a vegetarian of 30 years how do you therefore explain my fibromyalgia. I understand that diet can and does help but I also know it is not a cure.
Regarding this article, I will wait and see what happens but I am not necessarily optimistic.

I’m right beside Georgette. Let’s wait and see. I’ve read of this ‘cure’ before – it’s not brand-new, but I’ve seen no large-scale test results that would convince me the hands problem is the source of Fibro for all of us. I think Phil’s dietary approach is a good one, whether we’ve got Fibro or not, but is it the cure? Again, no test results of any significance have been reported.

I’ve been very fortunate not to have encountered any doctor who has not taken Fibromyalgia seriously…and I’ve learned that there is a very fine line between this disease and Rheumatoid Arthritis, making it somewhat difficult to diagnose immediately. Perhaps there’s some connection between the two..don’t know, but if the hand problem is truly the basic cause, let us please see some useful data gleaned from large tests. It would be wonderful if a cure were found!!

Fibromyalgia is one of many conditions that come from improper diet, e.g., too much animal protein (meat and dairy) ingested and processed foods in general. There is absolutely no conclusive, let alone renowned, evidence to support the “theory” of extra blood vessels “solving the mystery”. Having fought my disease, multiple sclerosis, very successfully with 0 meds (ever) and only my lowering my animal protein intake down to 5% or less per serving, has given me amazing results. If everyone did that, changed their diet to a mostly whole-foods and plant-based diet, there would be no Fibromyalgia, diverticulitis, diabetes, gross obesity, or heart disease, etc. The bottom line is “we are what we eat” so, people need to stop living to eat and instead eat to live. Eating smart. I was a musician when I was diagnosed MS and I played multiple instruments. That was in 2002. It’s now 2015, I am still a musician and I still play all the same instruments. The answer is a healthy diet and exercise. Period!

mmmm excess blood vessels in the hands cause me my pain in my back and legs and a few other joints too nope not convinced sounds like to me another false mystery solved case to be able to sell new treatments and medications to the public just like they did when they put everybody on the autistic spectrum in one bracket regardless of how sever they where

I’m cautiously optimistic….. but I’ve tried too many things already that cost me a fortune and didn’t end up working in the long run. I will take a wait and see approach with this before jumping in. The best thing I have found to manage my symptoms over the past 20 years is to be very careful with my diet (no sugar or starches definitely helps reduce the pain) and try to maintain moderate exercise such as walking on the treadmill. It can be difficult to stick to a strict diet but when the pain and fatigue is bad enough, I run back to restricting my diet and keep moving…… those have worked the best for me. I agree that having the doctors treat us the way they do has greatly added to the stress and depression that so often accompanies this condition. I hope they are really onto something with this discovery.

Lactic acid doesn’t cause the feeling of fatigue and pain; that is caused by the degradation of myofibrils (fibers in muscle cells) by an enzyme that is activated when calcium is released and not reabsorbed in overused muscles.

Don’t know where to start With this. So pleased there Might be some relief. Over 30 years since I told Consultant about severe pain in hands, arms, etc and he told me to go home and forget it. So glad people persisted in researching this. Still remindeD by excruciating pain daily.

Myofascial Pain and Dysfunction is within muscles which collects damages over time that do not heal correctly. The muscles subsequently begins to act erratic and contract onto itself starting a kinda “auto-destruct sequence.” These sick muscles will continuously exert a tremendous amount of force into itself and surrounding structures which alters cellular and DNA structures. These forces lead to damages and will affect all metabolic function too.
1. In the future, many more of these secondary distortions will be found in all tissues.
2. Important! Secondary findings are not primary causes.
3. Treating the resulting secondary problems will not yield a cure.
4. The treatments for the primary cause of MFP&D is still the same as it was 60 years ago; using the entire spectrum of myofascial tissue release techniques with hands-on and needling options in a wellness recipe.

Well, I’ve always known that its not all in my head. I know Me! Why would anyone make it up? Its very debilitating and no-one would chose to have this. It will be interesting to see if the new findings help.

My doctor still won’t diagnose me and I’ve been suffering for the last three years and getting frustrated… As I have kids to be raising and want to be there with and for them and to turn down things like swimming or skating or going to the park because of the pain that I would be in…

I can’t wait for a cure either. I was told fibro was what doctors said you had when they can’t figure out what’s wrong with you. Well I also suffer from RA. Which adds to the pain sensitivity.I just hope this helps with fibro.

I am recently diagnosed with Fibro, though i have been suffering with extreme pain and other symptoms for about 3 years. i have been told many possibilities of the cause of my pain, including the fact that that its all in my head which was degrading. Some medical professionals believe there is no such thing as fibro of which i find unbelievable. I have been doing a lot of research since being given the news and still feel at a total loss at what i or my doctor should be doing. Reading this has given me some hope of a more effective treatment for the future and do hope that support and funding is given to research program’s. Its a wide spread illness that needs to be addressed and adapted to individual needs as from what i have read is very different for each Fibro sufferer.

I have had FM for over 30 years ..everything said here by Evi Blueth is exactly my response, and would also like a link to the study….I do not believe in panaceas ,as Evi said it manifests differently in everyone. Yes the article surely lacks details….
Would be nice though…… ……

I have had FM for 30 years. Why should I believe that this is conclusively the cause of the disease. It manifests so differently in each person. I hope more exploration is done. It seems a bit too soon to announce and arrogant to make this a FACT. More exploration has to be done, and if the blood vessels in the hand are the cause, then what can be done? I find this article lacking a whole lot of details.

I have so many little blood vessels that have popped that started around same time I got this… I have gotten this weird blood vessel problem where they pop and swell during my fibro flairs and I always tried to ask if their was a connection… Hmmm….

No pop-ups for me. All you need is an adblocker that also blocks pop-ups. The only thing they are there for is advertising. Just do a search and you’ll be able to find one that works with your particular browser. I love it. No ads, not even on youtube. Even those inconspicuous ones that say nothing but ‘click here’.

No pop-ups for me. All you need is an adblocker that also blocks pop-ups. The only thing they are there for is advertising. Just do a search and you’ll be able to find one that works with your particular browser. I love it. No ads, not even on youtube. Even those inconspicuous ones that say nothing but ‘click here’.

In November 2008, the California Board of Chiropractic Examiners accused Whitcomb of incompetence, gross negligence, and unprofessional conduct, based on his management of seven patients. The accusation states that he (a) administered excessive treatments, (b) failed to provide adequate structural examinations, (c) failed to develop treatment plans that were medically necessary, (d) failed to perform sufficiently detailed follow-up examinations to gauge patient progress, and (e) advertised with sensational statements that were intended to deceive the public. The number of neck manipulations ranged from 60 to 143 [6]. ….. http://www.chirobase.org/06DD/whitcomb.html

About time I hope and pray this it…my previous doctor refer me to see a psychologist because he believed it was all in my head..I also hope we find a cure for sjogren’s, and why one suffers from migraines everyday.

Do some research on Lyme Disease if you have be diagnosed with Fibro. I think what they have found here is just one of the results of damage but at least they are doing something and it wont always be out fault.

I have had fibromyalgia for over 10 years now and doctors made me feel like a malingering fraud I have thyroid problems as well and chronic arthritis. I hope that they find a cure because this illness has absolutely ruined my life with constant fatigue etc maybe the world is actually listening to us for a change a bit late for me at 65 but will help others in the future

Sally
Its never too late! Me too had life totally rearranged by this condition and same treatment by others, dont give up try everything thats out there and keep going. Ive decided to go totally unorthodox with my remedies and against gp advice, but sometimes what they dont offer is the best help. I researched a guy called Rick Simpson and his work. He doesnt sell anything but what he teaches folk to make for themselves has certainly helped me.
Currently on iodine, accupuncture, spirulina and a bucketfull…..
Go well and keep looking at each day as a gift!
C

Fibromyalgia also goes along with CFS I also found that Lyme causes Fibromyalgia. Along with thyroid issues, CFS, IBS, adrenal fatigue, sensitivity to heat and /or cold and the list goes on. There is no cure for fibromyalgia and in order to get well from Lyme we need doctors who will treat and the CDC to change guidelines otherwise people will forever live in this pain and not get well.

I would be looking up about adrenal fatigue…this is a factor in chronic fatigue, fibromyalgia,etc….the adreals sit above the kidneys, if they become stressed, bang everything becomes out of whack and causes severe fatigue along with thryoid issues…lugols Iodine protocol is amazing for helping and eliminating these symptoms and bringing relief, eventually cure…read up on Dr. Brownsteins lugols iodine protocol

I suffer with fibromyalgia and have lost of pain, I was reading your email Paula and there you mentioned Lyrica.
my son also told me to ask the doctor as he says it is very effective, i love to go for a walk but can only do 15 minutes at the most.

My GP with a recommendation from our local Pain Clinic, put me on Lyrica some years ago, and it helped me manage my pain. Doesn’t remove, but it does help manage it more than anything else I have tried.

I was diagnosed in 1979. I Was lucky enough to find a Doctor in 1981 who believed it was real. The Rheumatologist who diagnosed me said it, “was typical of the Type A personality woman, overachiever” Thank Goddess for Lyrica. It has taken the pain down so much. This makes so much sense. I am printing this and taking it to my current Primary Care MD. If you haven’t tried Lyrica it might work for you.

I have been dealing with this for more than 20 yrs. I have fibromyalgia, chronic fatique, colitis, IBS, interstitial cystitis, restless leg syndrome, poor circulation, lots of nerve pain, had neck surgery, have more blushing disk, scoliosis, osteoporosis. And probably leaving something’s out. Oh always freezing. I wish I could get some relief b

was diagnosed in 1989 w chronic fatigue and fibro. It was really terrible back then because many Drs thought, it was something to give a patient so they could kick back and relax and know they werent crazy…I went to a rheumatoid specialist and he was so nice and understood it better than anyone Ive ever been to. Its not just in your head! Its real. Live it and you will understand. i would love to see something that would help this.

God help us all this IS truly the most painful REAL thing about 8 yrs ago I was diagnosed I had to be carried to the doc I was out of control pain so intense I could not walk craziest thing this doc knew what it was and had actually just started intensive research on fibro so many many diff drugs later and then stopping them all I still suffer so so so bad doc,s think I’m faking it can not get pain meds crying hysterically barely walk they won’t give me anything for relief then I start feeling like they think I’m a druggy or just want pain drugs and I’m just acting sometimes I do feel like I’m a druggy going in desperately asking for drugs or a big fat shot of pain killers right then and there!! Please let it be true they have found a cause and we can finally get some relief and have some kind of life finally
Every night I stress out knowing I will be up most the night trying to rub the pain from my body so I can maybe get some sleep but all night I find the pressure points and rub hoping like crazy will help or relieve the pain just a little then I’m just exhausted in morning then the cycle starts all over again it’s pure he’ll please let it be true they found the cause and hope docs will be able to help us!!!!!! God bless u all and hang in there

METHODS: Available literature was reviewed, including searches via the National Library of medicine database and other sources.

RESULTS: A review of the literature indicates that significant progress has been made since Dr. Ethan B. Russo’s landmark paper, just ten years ago (February 2, 2004). Investigation at that time suggested that cannabinoids can block spinal, peripheral and gastrointestional mechanisms that promote pain in headache, fibromyalgia, irritable bowel syndrome and muscle spasm.

CONCLUSION: Subsequent research has ***confirmed*** that underlying endocannabinoid deficiencies indeed play a role in migraine, fibromyalgia, irritable bowel syndrome and a growing list of other medical conditions. Clinical experience is bearing this out. Further research and especially, clinical trials will further demonstrate the usefulness of medical cannabis. As legal barriers fall and scientific bias fades this will become more apparent.”

I tend to think one can get the same benefits from other natural sources without the negative “side effects” that cannabis can cause. A more potent source of the chemical constituent that gives pain relief (beta-caryophellene) is a So. American balsa tree, and the product is called copaiba, or copal. It is potent, safe, legal, and reasonably priced. Just 2-5 drops of a therapeutic-grade oil makes for a powerful dose. Apply on the site of pain and rub in, or take in a capsule. I have had fibro for 25 years. This product has helped me greatly. https://www.youngliving.com/en_US/products/essential-oils/singles/copaiba-essential-oil

I have been struggling with fibro for years and getting people to understand is very difficult as you look normal on the outside they think it is not as bad as it really is. Pain clinic have me on a cocktail of drugs everything from morphine to Gabapentin I some times wonder which is worse coping with the pain or being out of it with medication. I hope and pray that a real solution comes along soon then we may all get a quality of life

Jan, I was on a similar cocktail and am completely off the drugs, and using natural sources now. Cedarwood essential oil in a diffuser by my bed gives me seven hours of sleep; copaiba, frankincense, wintergreen, and many other oils give me instant pain relief and energy that lasts for hours. You can re-apply every couple hours whenever you need for pain without overdose. It’s wonderful. Not trying to lurk here for personal profit, just sharing what has helped me. There are facebook support groups for fibros learning to use the oils. Go to facebook.com/ardengarden or purchase at https://beta.youngliving.com/vo/#/signup/start?site=US&sponsorid=1579733&enrollerid=1579733

I have had Fibromyalia 4 many years. My dr told me that it was my muscles. Dr gave me medication which helped a.lot. Dr than re refer me to the pain clinic.where they gave me anaesthetic. It has been getting worse as the days go by ,but I manage for my family sake

I just got pa!d $5689 w0rking off my lapt○p this week, d○ing easy and incredibly fun tasks from this ○ne cool site. It’s dead simple! Ideal for making a decent extra in-c○me; A must see site… http://bizreport300.tk

Pain meds are a waste of time and money. Slow release Guaifenesin has worked wonders for me. I am more like I used to be, although of the pastI still have some very tired days and nights when I dont sleep so well. Pain is almost a thing.of the past.
I stopped taking the medication for 5 weeks and was back to square one and couldnt move without pain, My brain was foggy I couldnt think straight. Walking, sleeping, standing and moving were crippling. I could’nt relax and felt exhausted and low, but within a week of restarting I restarted again. (would also add that through out the time I continued to take the medication from the GP, as I have to order Guai in from the USA and pay for it myself..Seratonin makes no difference at all or at lest very little.
It will be great to if this finding leads to a cure or better medications, I suppose like most things it will take a few years of research and trials, but fingers crossed the end of the foggy tunnel is in sight. Sheila

I have been treating fibro for the last 14 years. I know it is inherited. Trauma and stress play a big part in setting it off. I just try to keep moving because the sitting still is what hurts. Low doses of anti depressants helps a little, but is not a cure. I spent many dollars trying to get well before being diagnose.

Donna,62
I have had fibromyalgia for 5 years but all the Dr.’s made me feel like it was in my head. Now I have a Dr. that understands but won’t give me pain med. I have to go see a pain management Dr. first. I am hanging in there.

Best of luck Donna. One person a few days ago wrote they take two capfuls of whiskey for their pain her md will not prescribe pain meds. Thankfully my GP is willing to prescribe. I had terrible time with md@ pain clinic. I hope u get some relief soon! Ruth

hello in there—ive had fibromylgia for years.the only thing keeping me out of pain is whiskey. i take two caps full at a time till out of pain. never had a pain medicine as docters dont believe in it. i

Reduced reaction to pain?!!!! I don’t understand that at all! If I stub a toe or bump a knee the pain is immediate & more painful than it should be & the pain lasts longer than it should. The pain is excruciating. I’ve had symptoms of Fibro since I was a child & it became “full blown” in 2003. I am 48 now. My mother had it, my sister has it & so do both of my brothers. My neighbor has it, 2 women I worked with in the late 90’s had it, a former neighbor had it. I have met many people who have it or know someone who has it. My sister is now going through the horrible raw stabbing pain in the lower back/sacral area that leaves you breathless & puking & unable to move. The pain moves into the hip joint like a hot dagger stabbing you & down the buttock & leg all the way to the little toe. I experienced this same type of pain for years, so I know what she is feeling. Except, here’s a real kicker- her husband has chronic progressive MS & he is a quadriplegic in a wheelchair. She has to do EVERYTHING for him. The pulling of this 250 pound man up from a laying down position to sitting position & getting the lift harness around him & pumping the lift up & moving him onto the toilet & off the toilet & into the shower chair & back into lift & then back onto his back on the bed to dress him & rolling him around during the dressing process & pulling him back up to sitting position to get the harness back around him so she can lift him into the wheelchair is killing her. Then she has to do this again at night. To top that off – he is a real ahole! He always has been but he is losing his mental faculties & is driving her nuts. They cannot afford to get help or put him in a nursing home. She can’t work outside the home. She has been his fulltime caregiver for the last 11 years. He doesn’t understand or believe that Fibro is real, so that makes her feel terrible. I too have had doctors, my husband & others tell me that it is all in my head. I’m telling them all now, no it is not all in my head! This is real & it is horrible. It is not just pain either. There is the debilitating weakness & fatigue, bladder problems, intestinal problems, headaches, a strange feeling of having swollen toes, feet, hands & teeth. Teeth, you say? Yep, that’s a really weird sensation. There are many other symptoms I have not listed. Please, someone in science take this debilitating disorder seriously & help the millions of suffers of fibromyalgia.

I feel for both of you. I’m 43 and have suffered for years from Fibro/depression/fatigue. Just tonight I was mourning not being more involved with my children, who are now 17 and 20. I was to busy trying to find an excuse to go lie down. I promised we’d “play that game” or “watch that movie,” etv, tomorrow. My guilt is monumental.

My boyfriend, of 2 years, knows very little of the disease. Because of the negative connotation I’ve been ashamed to talk about it. I always thought women with Fibro were hypocondriacs or weak, so I’ve tried to hide it. Jj

I have suffered with fibromyalgia for yrs. I was a ball room dancer. very active , ate properly and looked after myself..Now I am on pain meds ,anti depressants(wrong kind as I do NOT feel less depressed ) My life has changed I do not feel like going anywhere .The pain has taken my life over..and the feeling of I do not give a damn anymore comes to mind more every day. I take injections,am dopey from the pain meds and because I do not have any broken bones my family cannot understand WHY???? am I always complaining about being in pain.

Hey Carole, I HEAR you, different story( 67 yrs old, diag by rheumatologist 20+ yrs ago!TMJ for longer and daily bad, on a scale, headaches. 20 yrs ago diag. With MS and also cerebral aneurysms . Today I am gearin up to go find out about tooth implant. Every time I do anything my body pain is extra bad for 5 days or so. Reading what I wrote sounds unbelievable but sadly is true. It must be extra hard for u having had such a truly physical life filled with people.
My husband thank god is a real trooper. He’s had to do so much. My friends have withered away except for a few cause I was always cancelling lunch or movie date…so depressed.
You r not alone, there’s a bunch of us out here. Hang on. Ruth

When I was first diagnosed, I was told it would never get worse but it would also never go away. Clearly by now, they know it CAN get worse. Somedays I hurt so bad, I just want to stay in bed. But I hurt just as much there as just getting up. People think you are making it up. The pain. Doctors have tried the low dosages of anti depressants, but I have bad reactions to those. Also a diabetic with arthritis. Hips and upper spine are getting thinner. After over 30 years if pain, it can get to you. Especially when you were active from the time your feet hit the floor to the time you laid your head down. Would truly love to wake with no pain again.

Hi Jerry Ann, sorry to hear(read) about your experience living with chronic pain. I have a very similar situation and it is pretty lonely living this life. I had the poor luck of watching dr Phil give a lady with chronic illness (granted she was a kind of crazy gal) the ” you r being self indulgent and making a bad situation worse”. She was a nut job, but it made me feel so bad about not being able to do much and if I do something social or even have teeth cleaned , I am in extra body and head pain…
Hope u have some good parts of today.
Ruth

I have Dupetryns’s contracture. would that have anything to do with it. It does not hurt but I have had two surgeries on one hand and the other is getting worse all the time. It runs in my amily. My father had it and so did my brother. I have had more problems than either of them.

i suffer with fibromyalgia doctors told me it was all in my mind too,even before i was diagnoised in 2002 when i had visited i drew pictures to pin point the pain areas where it was painful,i was even admitted numreous of times to hospital, for blood test nothing was found even thought i had throat cancer cause i couldn’t swallow anything. When eventually i WAS thinking it all in my head i got really depressed, panicky, paronoid etc…the consultant examined me with exercise which were so painful it made me cry, i was given a leaflet which showed all where i pinpointed my pain all those years of not knowing,sometimes i don’t go to my gp incase am told its my fibromyalgia unless its a pain i don’t recognise as i’v learnt to detect different pains, i do try and eat a healthy diet as certain foods triggers somethinsg i eat. Its now 2014

I am suffering from this fibromyalgia at list for 30 years, I hope they will come out with a cure. I have been told from doctors and even people close to me that the pain was in my head. I am 63 now and I have been suffering at list since I was 30 years at old. I am a walking burmeter I know excacly when the weather is going to change. At time in the morning I felt like someone has beat me up. I sincere hope that they find a cure and special for young people.

I bein suffering for 3 years.Now for 2 months I am taking It works greens and vitamins and getting Kinetic trea
tments.Completely changed my life.Look up http://www.tapaswrapper.ca
Do not ever loos hope!

Also, fibro is generally used by doctors as an umbrella term for aches they don’t understand. A fibro diagnosis is rarely a legit fibro diagnosis. I’ve seen patients with “fibromyalgia” as a diagnosis… but only trigger points were present. So be careful about what your doc tells you, a second opinion is always good. And maybe now the umbrella diagnosis of fibro for body aches will cease.

I have been diagnosed in 2006 after my car accident , i was 3 and a half months pregnant at the time. i tied medications for this but i have gotten every system ut said on the package. so my specialist recommended meditation which i have been doing and i still do and it works awesome because it relaxes all the muscles ect. but the fatigue is what the big thing that bothers me no matter how much of it i get i need more. i have 5 kids and its hard at times to get sleep. i believe it is fibro that affects my moods also soooo i am so hoping this is a cure as i need my life back .

Im new and also have fibromyalgia and rheumatoid arthritis I also was In a Car accident in 2011 Wich I also told my lawyer about I had nk ne of these issues before that car accident after about a year of being sick and not living I started taking sevalla and malozicam and tradable in the last two years I have quit taking all these medicines due to I feel much better now I try hard everyday to egnore the pains and aches and I get plenty of rest and that’s what keeps me going I think

Hi and God bless to you all. First time posting. Please allow me to share a short story, wondering if anyone else can relate. I was in a car accident in 2009. Was rear ended and at a stop, driver going 40mph. I hurt all over, for about a week. Afterwards I noticed other pains and did not go away, along with fatigue, diarrhea that started a few weeks after the car accident. Weak legs, brain fog, vision impairment, and the list goes on. I have told my attorney the accident brought this on. They keep telling me that it is something that you are born with and lies dorement. I think this is untrue but whom am I to say. I sent them a clip from the National Fibromyalgia website where it STATES, I could be caused by trauma to the body!
Anyhoo, I also wanted to share, I have been diagnosed with arthritis a few years back and get it so bad in the knees that I cant walk. They gave me steroid pills that I took for two weeks. I felt so great, no pain from Fibro and arthritis for months! I took it in the spring and hope I can get a dose this winter to see if it works again.. as winter is so bad on both!

What I have been told is that it develops in your body, generally due to some kind of abuse, but lays dormant until there is some kind of trauma. Mine was also triggered by a car accident. I was hit head-on by a woman who lost control on wet roads and crossed over into my lane. After a while, my hands started hurting and going numb. First, they tested me for Carpal Tunnel. That came back that I had it mildly in one hand, but not the other. Then they referred me to a Rheumatologist and he diagnosed my Fibro. He is the one who explained it to me and gave me some paperwork that also had the same information, plus more about some of the side effects which I was having, but didn’t realize it was related. Of course, now I suddenly get treated like I’m some kind of drug seeking pain pill addict, even though I hardly ever take my pain meds. I hope this story is right, and that they figure out a cure soon, because I would like nothing more than to have my life back!

I was diagnosed with F M about 30 years ago. Finally had to stop working 5 years ago.
No matter what I did the good days were fewer. They,ve tried everything medically possible.I could not take ati immflamatories. So I really hope that what they think is the answer is an the come up with some cure or better help. Atleast someone cares. Our government doesn’t seem to.It been along tough road an no income.

I remember way back to when I was 3 or 4 and thinking, “I wonder why God made it so that it hurts when you have to pick up something from the floor.” I hurt always to bend over and pick something up. I also believed that everyone had pain and that was how the world turned. My family didn’t go to doctors often – very rare and you had to be half dead to go. My parents would never have considered my pain as real or even worth talking about. But I imagine I’ve had this fibro crap for all my life. It got dx when I begged for pain medicine – so humiliating that I couldn’t show them the pain. 🙁 I got sent to a pain center and they did some kind of spinal infusion – which did nothing. They gave me oxycontin. I took one dose and felt so bizarre and sick that I never took another. I kept telling them to just give me darvocet. It worked and the chances of addiction were lower. I don’t know. They gave it to me until they said it kills people. Isn’t it crazy that with all this so called drug research NO ONE can find something safe, non addictive and works to make you feel better? I guess there’s no profit in it. Now they have decided they know best about pain killers out now and insist on triplicate so you have to go in to your doctors office and be humiliated to stand at the counter in line for your rx. I’ve taken the stuff for over 15 years. That’s a long time. and my dignity is out the window because I need pain medicine. I hate hate hate this disease and would do most anything to get rid of it for everyone!!

I sure hope you get the help you need, both physically and mentally! MD’s can be so ridiculously self-riotous! I think DO’s a better physicians (In case you don’t know, a DO is a Doctor of Osteopathy. They are permitted to do everything an MD can do, but their training is more of the muscular-skeletal systems than internal organs. I have always found them to be more understanding in areas of physical pain.. Good luck!

Wow! Now I can relate to them saying it stems from your hand’s. Because every time I clean the house ,or do gardening etc etc. I’m down & out for a day @ least. I usually take antinflamatory drug’s & over the counter pain meds. I get very fatigued. & depressed afterwards. Please find a cure. I’m so tired of suffering. As well !

I’m 54 years old. I was officially diagnosed by a Rheumatologist abt 20 years ago. But a few years back I was thinking about my childhood and my illnesses. I remembered I was sick a lot with low fevers, chronic stomach problems, joints hurt and more. Drs thought at first it was rheumatic fever, but they ruled that out. Finally frustrated, when I was about 10 they said all they could say was that I just had growing pains. Now I realize I was suffering with fibromyalgia at that age. So I’ve been suffering for at least 45 years with this “all in my head” disorder. I pray they find a cure soon.

I have had it for 10 years. If this is a cause, it is only one. My Fibro flairs up badly if I intake artificial sweeteners, MSG and some additives and preservatives in foods. I tested my body with foods which took about 8 months total when first diagnosed. I can tell you with NO doubt that these items make my pain much worse. I have documented my journey and what makes my pain level higher or lower and will be glad to share my story.

Yep, me too. I take a supplement called Takesumi Supreme. It filters out the toxins from your blood & organs. It is a high grade bamboo charcoal. Just like charcoal is given when a poison is ingested. Now, don’t freak out at charcoal. It’s not like the charcoal that you use in a BBQ grill. It is all natural, no toxins of any sort. This gets rid of the “fibro fog”, food headaches & other allergic reactions from eating foods at restaurants or at other peoples homes that contain msg, dyes, preservatives etc… It cannot be taken within 2 hours of taking any prescription or OTC meds as it will filter them out as well. This stuff is great! If I indulge in takeout pizza & I get a headache & fibro fog, I take the Takesumi & within an hour the headache is gone. I eat as clean as I can though but sometimes I indulge in a treat. The organic & natural is more expensive but worth it. I definitely can tell when I have eaten “unclean” food. I feel like crap.

I was diagnosed with F M in 1992 had tried to work with pain and fatigue till I could not do it anymore ,from then on it was Doctors Specialists Hospitals Shock Treatment Pills that made me worse and its all in your head ,I hope they can find a cure for everyone who has it but more for younger people so that they dont spend there life suffering this awful illness.

I was diagnosed with FM 1992 had to quit work right away because I could not drag myself there anymore.Went threw hell after that doctors specailists hospital shock treatment I have learned to live with it and pillsI am in Canada.

If you have not gone a gluten free diet you must, immediately. My health is 500 times better than it used to be. My fibromyalgia symptoms are not gone but have subsided dramatically. I’m not in pain everyday, I was able to get off of my anti-depressant, I clot now after a cut, I have more energy. It took 3 months for me to see the results but I have now been gluten free for 9 years and feel much better. Don’t tell me you can’t give up bread and then complain. DO IT!

I have always felt like I’m being beaten with a baseball bat…continually! The pain and fatigue have become relentless the older I get. The weather changes have become more debilitating. I’m so tired of doctors telling me that it’s all in my head and I need to get through the pain by more exercise or go to support groups. How can you exercise if you have no energy? And how many support groups can you attend while listening to others complaining when I’m trying not to complain! I’m tired of being frustrated all the time because I can’t do what I know my body should be able to do. If this article is real and the treatment is true, then I’m all for it!

I have often explained to people that the pain is like severe arthritis is to the joints FM is to the muscles. Pain is one thing but the fatigue is crippling as well. Even when I sleep I don’t get to REM. I get the best results from a mild muscle relaxer, something for pain, something to help me sleep and lots of vitamins. The article is encouraging.

I was diagnosed with FM about 18 years ago and I have since had to stop working because of the pain and the unpredictability of my general health. I’ll be happy if they can find the cure or at least better treatment in time for me to be able to return to the workforce. I live in Canada and I am a very willing guinea pig.

anyone with a Fibromyalgia diagnosis may want to seek help from vascular surgeons, they can do a blood pressure cuff test that will reveal if the issue is actually a DIFFERENT FIBRO-“FMD-Fibromuscular Dysplasia,” mine showed I have only 40% blood flow in my arteries, they usually come up looking like a string of beads or rosary beads. I also have Reynauds, fingers turn red and white so far no Blue! another issue may be Ankylosing spondylitis, caused from Klebsiella infection then it get sin to bones causing all sorts of pains from neck to back and hoops, even knees and feet, literally ALL OVER! Lyme is another issue many with Fibromyalgia have that docs wont test for when they do and find some bands they DENY the patient proper care then give them a lot of imaging making them sicker…this happened to me for years

word of caution is to watch what you allow to be put into your body by virtue of imaging studies. I have found FIBROSIS occurred within my exposures to Gadolinium contrast MRI’s for my 22+ years of undiagnosed Lyme. Check out the site http://www.gadoliniumtoxicity.com a very well researched site it is NTO just happening to those with kidney disease (Nephrogenic Systemic Fibrosis is the name of the disease process-the ONLY man-made disease there is!)

At 66 yrs old I’ve had Fibro since before they gave it a name (back in my mid-20’s). After years of physicians telling me ‘nothing was wrong’ or ‘see a psychiatrist’ etc. a Rheumatologist sent me to a Dr. in St. Louis, MO (near my home) so he could examine me. Come to find out he was the physician who named the condition and he verified that I had it. I remember crying because FINALLY I wasn’t being told yet again that it was my imagination. He died many years ago and I can’t remember his name anymore. But he was such a kind man.

The best explanation I’ve heard about the condition is that it resides in the soft liquid area between tendons and muscles. That made sense to me especially since any change in barometric pressure REALLY effects the condition! I admit I’m quite skeptical about this apparent ‘new discovery’. I guess time will tell if it’s correct or not. Until then I’ll continue on taking 600 mg Ibuprofen every morning to get me moving and a pain pill at night to help me sleep. Basically I just live with it. Don’t get me wrong though. I hope this IS the cause and that a cure will finally be found… Hope DOES ‘spring eternal’!

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I was diagnosed 4 years ago, fibromyalgia, osteoarthritis, nerve damage in my arms and carpal tunnel.
I exercise lightly but very regularly, I hardly touch beer. The biggest help has been a refusal to give in. I was medically retired from royal mail but have recently taken a part time job. It’s hard going but I won’t give in.
If a cure is found, I’ll be ecstatic. Until then it’s melodically and trampoline for me. Sleep is hard, but I take it when I can get it!
My joints ache, my muscles ache, my stomach hurts and my extremities tingle, but I’m fighting back, so can you!!

Im having bad simpoms in my left hand point with my accupuncture treatments. It brused two months ago and i’ m having pain in my finger and thumb. Also, when she tune forked my damaged T11/12, a pain shot right up to that left hand point. Accupuncture has been helping my energy and sleep. Takes some time to peal the layers of fibro damage in this practice

I have been diagnosed with fibromyalgia; arthritis; fused vertebrae and sclerosis of the pelvis, hip and lower back.

When I first was having MRI scans etc. and wondering if I had fibromyalgia, as all the symptoms suggested, my line manager asked if I had had an unhappy childhood.

I worked in education which is supposedly a caring vocation, however I felt as others seem to have done, that it was viewed as ‘all in my head’. It took a year to diagnose and because of the evidence of MRI scans and x-rays I received early retirement on ill health.

I also have had a partial thyroidectomy, because of an overactive thyroid,(Graves Disease). As well as a bleeding condition called Von Willebrand’s Disease. I think the thyroid is definitely linked and wonder how many other sufferers of fibromyalgia have this?

It is unfortunate that chronic pain is sometimes not visible. At the moment I take Gabapentin and Co-codamol for the pain and wonder if there is other treatment or suggestions which help.

I used to walk long distances and loved gardening, however I now feel 78 instead of 58
and just want to feel more in control of the pain.

Me too Linda. I have a fused spine in my lower back. And I did have an awfully traumatic childhood. I have an appt with a chiropractor who understands injuries as I have an old whiplash injury, so I will put it on here if this helps me walk better. I want to give you all hope and less pain. By the way, I’m 63, look 45 but feel at least 80.

I also had graves disease several years ago and had the radioactive iodine treatment. I have fibromyalgia too. I was told by the endocrinologist that once you get one disease that has a positive ANA factor its easy to get another. I am always borderline for rheumatoid arthritis. Found out i have scoliosis in my back. Just everyday in pain as you know is not fun but we keep on with hope. Take care and blessings.

Yeah, doctors do seem to say things like, it’s all in your head, or I never heard of that (as if to dismiss you). The problem is that Doctors have huge egos and put themselves on a pedestal (right next to God). They are afraid to simply say, “I don’t know what is wrong with you”. They also receive huge pressure from the pharmaceuticals to sell pills. Else they miss out on their convention trips to Pago Pago. Advice to the patient: Don’t be afraid to tell your doctor his if full of you know what! Seriously!

Before I finally got my diagnosis, and sometimes after, the doctors either didn’t know what was wrong, or when I mentioned I had depression………boom, we had a diagnosis. I was just depressed and all the pain and fatigue was a part of the depression. I knew better, but I couldn’t tell the doctors that or they got mad for questioning their diagnosis. It was a battle I fought for many years, until one doctor finally referred me to a Rheumatologist and within a few minutes with him, he diagnosed fibromyalgia, along with osteoarthritis. No wonder I was in pain. But, now it is still very bad, and I have nothing to take but Tylenol and that is a joke. It does nothing for me.
.

Each person is different… each need is different…my fibromyalgia is ruled in combination to degenerative disk’ and RA, osteoporosis… over coming cancer’ and this pain starts at the base of my skull & neck , where muscles pinch nerves, causing severe pain & headache.. muscle spasm’s that control everything simetrickly’ trigger point shot’s sometimes knock out pain instantly’ to certain nerves…I know we all have pressure points, and who ever said it is all in the hands , needs to live in a few different types of pain’ from Fibromyalgia… it is in the head’ and neck muscles, shoulder muscles …feels like your head is too heavy for your shoulder’s some days, and sleep is a joke, when you’re tossing every 20 minutes to another position because your bones & joints hurt from the position your in..ask some one who is not a pill pusher’ believes that God can still heal…

Sooo true! In addition to mild scoliosis, arthritis and other disorders, My whiplash injury from 1979 has caused my body the most pain, My head has to to be supported by my shoulder muscles. I’m in constant pain, and my chiropractor says it’s akin to trying to balance a bowling ball on the tip of a pencil. This really does a work out on the shoulders, and the spine. No wonder I’m in pain 24/7.

I have all of the exact same symptons as you…..have been bedfast for 2yyears…..i quit going to doctors…..some days i can barely move….i use a walker to go to bathroom….but struggle to get back into bed….i can only sleep one hour at a time and nap all day…my neck and shoulders are the most painfull….guess we are doomed to this life

I have had fibromyalgia for many years and I find that the longer I stay in bed the worse my pain is. Your muscles atrophy the longer you don’t use them. Marge please get up and push yourself to move. A little at a time but keep going. Do stretching exercises with your muscles or yoga! Go back to see a doctor they have new ways of handling this. Pain meds as needed but activity is a must. Where do you live? Don’t give in to this you can change things.

I am curious if you guys and gals would share what meds u take and also what meds help.
I wondered if we are not “allowed” to mention names of meds.
I recently added Flexeril to my meds and find it helps.

If this is in the hands then what is the therapy for it? I get such pain in my hands and test done said i had carpal tunnel but the brace doesn’t relieve the pain and the pain goes up to my shoulders so how can that be carpal tunnel. I see the posts on qigong and cranialsacral but what else can i start with? I have a very understanding wonderful Muslim woman doctor who is working with me but my insurance doesn’t cover lyrica which was beginning to give me relief. I take herbal & vitamin supplements and even blended my own herbal tea which i have had some relief with. Now this news changes everything.

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Yep, I have seen a combination of Qigong and CranioSacral therapy completely remove all symptoms of Fibromyalgia. The problem is that most people want a magic pill and will not try exercise or alternatives to allopathic medicine.

Exercise really makes me worse, I can’t move very well due to a crumbling spine and the resulting surgery. I can’t bend and definitely can’t get back on a bike. Sleep medication makes me drowsy for 12 hours but I still only get a few hours sleep, morphine doesn’t help with the pain just makes me a space cadet. I get temporary paralysis from the waist down, some days only for a few minutes, the longest time was over 3 hours, exercise makes this worse as it creates more wear and tear and further damage to the nerve endings.

I was diagnosed w/FB at least 10 yrs. back…but once I got on a C-Pap machine after being diagnosed w/Sleep Apnea, and after a lot of prayer for me I don’t claim it anymore. I experience some stiffness but not the debilitating inability to move w/o pain or when someone would touch my body. Receiving quality sleep and being able to enter into my deepest sleep levels, I am healed of Fibromyalgia…and I don’t want it back.

My FB is a side effect of Cushing’s Disease. It actually causes your body to create more blood vessels throughout the body, as it enlarges the body more blood vessels are needed. This causes more wide spread pain. I’m curious if they examined if these patients have excess blood vessels throughout their bodies, or if the hands are the sole cause?

Exercise makes Cushing’s worse and aggravates symptoms. It’s the only disease I know of that you should avoid exercise. Those who recommend it for Cushing’s patients make things worse for them without knowing what they’re doing.

Without narcotics I am bedridden and wheelchair bound. I wish that FB was my only source of pain so that if a cure is found I could benefit too. Unfortunately, in my case, it won’t make much of a difference. Cushing’s disease brought with it too many problems to solve. They say I’m permanently disabled and probably suffering from MSA too. How does Cushing’s Disease cause all this! ?

I have been diagnosed with FB and RA about 5 years ago, being on numerous medication and chemo tablets I cope from day to day. At one stage I could hardly walk with pains in my hips and muscles, I started cycling and it was wow with the change in my body, it made me feel better about myself and my pain got less although sleepless nights are getting me down. I refuse to take anti depressants. I would love to know if ever there will be a cure for FB. My sympathy with all my fellow FB friends out there….don’t stop exercising, hydro therapy is wonderful. Stay positive and don’t give up.

in 30 years since I was diagnosed with it they still are no step further……all kinds of fundraising for research for all kinds of illnesses and or dideases I never saw one for fibromyalgia…in the Netherlands you are still treated as being stupid and its all in your head…..it sux

They talked some months ago about a blood test is becoming available this e=will cost alot of money people cant afford a= something like 700 or 800$. this in the states and god only knows when we would have
it available here in Ireland.

There really isn’t one said test. It’s actually a battery of tests to rule out other things such as RA and Lupus. They do include blood tests though. My doc actually even tested me for Celiac’s and did an exclusion diet to see if I was allergic to foods as well as sent me to specialists for their own battery of tests. Super exhausting and then they say, “We have rules out this, that and the other thing so we believe we can safely diagnose you with Fibromyalgia.”. I was told to eat better, exercise more and to get more sleep. I was out on anti-depressants for over a decade. They did nothing but put me in a fog.

Cure the symptoms, you’ve cured the condition. Here is a video you may be interested in. “You know who” may have a horrible bedside manner, but he’s correct on all other counts. Raise your hand if you enjoy living in pain every moment of every day..If not, then watch this wonderful doctor offer us the hope and cure we’ve been searching for.

I was diagnosed with fibromyalgia 3 months ago. I suffered from the symptoms for about 2 years. I am 52 years old. I am currently in Namibia. Where can I find out more and maybe get the help I need! Please!!!

With three new comments posted within four minutes by two new users, both seeking medical advice and after considering the seething hatred for and failed attempts to discredit me so far, it occurred to me that it may be illegal to advise others even with a disclaimer no matter how noble your intentions are, how damn good your advice is, or how desperately some people need to read the truth instead of the latest line of commercially motivated propaganda.

It occurred to be that I could be set up by those who desperately want me off this website. Possibly by those who stand to lose ad revenue, clients, or drug sale profits.

From now on, I will simply suggest a click on my name. Soon, I will create a new page explaining how I transformed my life drastically ultimately becoming the most healthy and resilient person I have ever known. I will also explain how I saved one life and significantly improved three more. Finally, I will explain my ‘suspicions’ regarding Fibro, RLS, and a number of ‘conditions’ which doctors have failed miserably to make any real progress on.

What a pathetic state of affairs when the most bloated pig industry in the world can get away with drugging everyone while curing nothing and reaping multi-billion dollar profits.

The symptoms hit me in my early. 3os. I found a book called what your doctors may not tell you about fibromyalgia. Dr st. Armand is the author. Get it. It explains how this condition operates at the cellular level. I take guaifenesin every day per the book. I am symptom free. My pressure points are gone. I sleep at night. No more fibrofog. This article misses the point.

What exactly is guaifenesin? U see i,ve been put so many anti inflammatories and anti depressants but had absolutely no relief from pain whatsoever, only seem to cause all sorts of other problems. I WAS EVEN PUT ON THE GREAT SO CALLED BREAKTHROUGH DRUG FOR FB SUFFERERS FIRST ON IT’S ON AND THEN ALONGSIDE CYMBALTA AND NOCTAMID FOR SLEEP. AT THAT STAGE I WAS ON AT LEAST 12 TABS A DAY IF NEEDED HE SAID MAX TOP IT UP WITH PARACETAMOL. THERE WAS STILL NO PAIN RELIEF, THE NERVE PAIN SEEM TO GO CRAZY RIGHT AFTER INITIAL DOSAGE AND I WAS TOLD TO BE PATIENT BY MY DOC, WAS VERY TO DEAL WITH THE PAINS AT TIMES NEARLY DROVES ME UP THE WALLS NIGHT AND DAy. ONLY FOR BEING A SINGLE MOTHER TO A YOUNG SON, THERE WERE TIMES I JUST WOULD HAVE GLADLY WELCOMED DEATH SO I HAD TO WAS DESPERATE FOR RELIEF IN ORDER TO SAFEGUARD MY SON. IT WAS HE WHO SAVED ME. STILL NO CHANGES AFTER 2 YRS, I SAID TO MY DOC THIS BUT HE STILL INSISTED, I SAID I HAD ENOUGH,HE DIDN’T BELIEVE HE HAD ME ON THIS LONG, UNTIL HE WENT INTO MY FILES. THE END RESULT WITH TERRIBLE MUSH IN MY MUSCLES ‘FLACCIDITY’ FROM OVERUSE OF ANTI INFLAMES. AND BECAUSE MY UNDERLYING PROBLEM IS HYPERJOINT SYNDROME MY CONNECTIVE TISSUE WAS ALREADY WEAK,AND FAR WORSE NERVE, KIDNEYS AND STOMACH PROBLEMS TOO I ALSO NOTICE READING PROBLEMS AND TRY TO USE CAPS MOST OF THE TIME! SUFFERING ALL THE PAIN WAS BAD ENOUGH BUT WHEN YOU HAVE TO GO DOWN THIS ROAD IN THE HOPE OF RELIEF AND ONLY END UP WITH MORE PROBS. IT JUST KNOCKS THE STUFFING OUT OF YOU. CAN ONLY DESCRIBE IT LIKE BEN LOCKED IN A TORTURE CHAMBER AND THEN THEM THROWING AWAY THE KEY,… ALLOT OF PEOPLE I KNOW WITH HJS AND FB HAVE SIMILAR INTOLERANCES TO THE CHEMICALS IN DRUGS.THEREFORE I WONDER HOW YOU GOT THIS EASY CURE AND DID THEY MAYBE EVEN MISDIAGNOSE YOU

Would be very interested in your answer please ssssssssssssssss! thanking u ,,,.

WELL CAN’T COMMENT ON BOOK, BUT I HAVE SEEN THIS VIDEO SOME WEEKS AGO AND CAN RELATE TO EVERYTHING IN IT. MY SPINE AND NECK HAS SIMILAR DAMAGE AND MISALIGNMENT WHO HAD PULLED UP MY LEG SHORTER THAN THE OTHER DUE TO DISC DEGENERATION AND A SCOLIOSIS CURVATURE OF SPINE,ONE NECK DISC COLLAPSE AND AN EMPINCHMENTIN THE THE NERVE. THE REACTION TO PROCESSED FOOD AND ANYTHING THAT IS NOT NATURAL IN FOOD PRODUCTS, THE SAME.THE VIDEO DRAWS A VERY UNCANNY DESCRIPTION TO ALL THE SYMPTOMS I HAVE AND I FEEL WE ARE BEEN SLOWLY POISONED BETWEEN PROCESSED AND SPAYED FOODS AND ALSO USING DRUGS WITH CHEMICALS ADDED, AS ANYTHING UNNATURAL CAN’T REALLY CAN’T BE GOOD FOR US. I THINK MAYBE WE ALL HAVE TO OPEN OUR EYES MORE TO A MORE NATURAL ROUTE TO TRYING TO IN THE FIGHT AGAINST THIS FM AND OTHER CONDITIONS. MOTHER EARTH HAS GIVEN US SO MANY NATURAL GROWN HERBS AND EVEN WHAT WE REGARDS AS WEEDS, LIKE NETTLES. SO MORE MONEY SHOULD BE INVESTED IN THIS TYPE OF RESEARCH INSTEAD OF THE UNNATURAL CHEMICAL COMPOUNDS WE ARE STARTING HAVE BAD REACTION TOO. SOME PEOPLE ARE OK WITHOUT ANY IMMEDIATE REACTION BUT WHAT HARM COULD THEY BE DOING IN THE LONG TERM. IS MORE WORRYING, LYRICA PRODUCTION HAD BEEN WITHDRAWN AFTER THE DISCOVERY OF TUMORS ON THE MICES HEADS THAT THEY WERE BEEN RESEARCHED ON. I HAD FOUND OUT AT THE TIME I WAS BEEN PRESCRIBED IT IN SPAIN AND THAT WAS SCARY WOULD NEVER HAVE KNOWN A THING UNTIL I RESEARCHED FOR MY SELF. TO ME IF WE START TO DAMAGE THE VERY HUMAN CELLS WE, SHOULD BE TRYING TO PROTECT FROM FREE RADICALS AND THEN POISONOUS CHEMICALS, WE REALLY ARE ASKING FOR TROUBLE. I THINK A LOT OF DOCTORS HAVE COME ALONG WAY ON THIS AND MORE NO TO A HOLISTIC NATURAL APPROACH AS A COMPLIMENTARY MEDICINE AS I WAS NICELY SURPRISED TO KNOW I COULD AVAIL OF ACUPUNCTURE. THERE IS STILL MUCH WORK TO BE DONE! BEST OF LUCK TO ALL WHO SUFFER OUT THERE AND TO THE DOCTORS ALSO AND THE HOLISTIC WORLD, IN WORKING HAND IN HAND I BELIEVE ONE DAY A SOLUTION WILL BE FOUND, SORRY IF THIS VERY LONG BUT WE THE SUFFERERS KNOW ALL TO WELL THAT HARDLY ANY PART OF US THAT IT DOESN’T INCLUDING THE BRAIN WITH= ALL SORTS IF PAIN IN PLAY,ONE TRYING TO OUTDO THE OTHER,WE SO DESPERATELY NEED A LOT MORE RESEARCH { I’D GLADLY VOLUNTEER FOR THIS} ANY SUGGESTIONS OUT THERE ANYONE? AND MONEY TO GIVE PEOPLE SOME HOPE. PLEASE HELP,

I am 18 now, and have been struggling with Fibromyalgia for about just over 4 years now.. It has been a very rough road, and have gone through numerous so called ‘solution’ to my illness. I have found that everything I have been prescribed and tried only reduces the symptoms and makes life a bit more bearable.
My mom is always on the look for new possibilities, so this was very helpful. I am currently on 120mg of Cymgem, which appears to be working so far. If anyone else has any suggestions that you have tried I would really appreciate it. I am in my Matrix year at the moment and am really trying to cope with this illness and my finals.. Any suggestions would be much appreciated! Thank you xx
Kristina

RLS is caused by tickled spinal nerves. I know this because I’ve already cured two cases of it. If you’ve had the symptoms, consider your recent activities and try to avoid highly repetitive twisting motions of the lower back.

The two cases I cured involved a woman doing too much laundry and a man doing too much shoveling.

And never take any pharmaceutical until you are familiar with the side-effects.

Of course, you must find a doctor you can trust within the miserable and corrupt healthcare industry and consult with him or her before t