Thursday, May 10, 2012

Rituxan Infusion

It became clear to me that by Sunday, maybe Monday morning, we should not have skipped that steroid pulse on Wednesday. His limp kept coming in and out, the good ol' red rash on his face returned.

Tuesday we had a physical therapy. We love our physical therapist. She is knowledgeable, and does well dealing with Gary. His reports came back and it was what we expected. Below average to well below average for bilateral coordination and balance. So the plan is as soon as he is to a infusions once a month we well step up therapy. We are hoping this summer to do twice a week, and occupational therapy, like hand strengthening ect,.

When I told our doctor that I think we should have went ahead and pulsed him last week, she brought up one more time, the port. She warned me that this was the last time she would mention it. She said that she is not in favor of it, but if I am, then she will put the order in. Because it looks like we are going to go to once a week infusions for a little bit here. I said no. Then we had a 5 poke infusion start.

Just going with it right now. Making sure he stays walking and swallowing. Making sure I stay in tune with his symptoms. Tired.

About Me

My Blog List

Go, Fight, Win

Najwa Mansour,
Kathy Voorhees,
Paula Gausepohl,
Joyce Harris

In Loving Memory

Justin Brubaker

My Thank You Box

This is my thank you box Thank you to everyone for your love and support! Thank you for the all the gifts and the dinners. Thank you to my wonderful family. We wouldn't be able to get thru this without any of you. Thank you:

Nannie Lyssa

Uncle Bill

Manna Girl

Nannie Mimi

Uncle Ray

Uncle Moe

Aunt Nicole

Drandpa Armstrong

Drandma Armstrong

Drandma Bradford

Auntie Colleen

Colleen Basham

Melissa Brown

Jack Armstrong & Family

Lynn Williams

Dale & Shari Roth

Linda Fields

Heidi Fields

Deanna Anderson

April Fleming

Anelle Abernethy

MARY KINDEL

Pastor Dave & Cathy McBroom

Zena Rosinski

Eric & Wendy Johnson

John & Kelle Patterson

Matt Clapp

Roy & Maya Carter

Sean & Aubrey Patterson

Earl & Dana Nausid

Prime Source Co.

Thank you to Prime Source and all of Robert's co-workers!

*White Sox Baseball Team*

Lisa & Stewart

Betty Lovell

Candyce & Cash

Tony & Michele Truax

Patrick & Tawnya

The Mahonies

Everyone on the team

May the Lord bless you! May the Lord keep you. May blessing rain down upon you for blessing our family.