http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=9778
Tue, 26 Mar 2013 00:11:05 +0000PunBB 1.4.2http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72870#p72870
Kris.... at times our probing and pushing for answers reaps rewards. You go, Kris. Looking forward to your report on the upcoming visit.Hugs,Marion]]>Tue, 26 Mar 2013 00:11:05 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72870#p72870http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72859#p72859
Great stuff Kris and glad to hear that you are now getting somewhere with Dr K.]]>Mon, 25 Mar 2013 20:44:35 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72859#p72859http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72857#p72857
Oh my, Dr K felt the dread and feared our Kris! Good girl Kris. You know better than anyone how you really feel about it so your decision is 100% backed over here. Are you sure she didn't have a few drinks before seeing you! This is good news and I am so very happy for you!]]>Mon, 25 Mar 2013 20:18:53 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72857#p72857http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72854#p72854
HEY!!! GUESS WHAT?? Dr. K. actually listened to me and answered almost all of my questions!!! And mostly to my satisfaction! And I didn't have to bar the door!Her recommendation is for me to go back on gem/ox, just a little lower dose so it hopefully doesn't get too toxic too fast.We kne the Xeloda/gemzar combo didn't work, but she said adding tarceva to make GTX might work. Or the other onc might be willing to try tarceva with oxaliplatin. She is asking my original hospital for the biopsied cells to look for markers for a couple of newer chemos! Has anyone seen the real Dr. Kemeny???Now I get to wait until next Monday to meet the "new" onc and see what she says....]]>Mon, 25 Mar 2013 20:05:19 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72854#p72854http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72789#p72789
I truly believe that our bodies need a place of harmony, free of stress for the best healing to take place. This doctor you have had has only caused you stress and to have little if any faith in her. It is definitely time to get a second opinion and to find someone that you can believe in and takes time to believe in you. Best of luck to you.

Cathy

]]>Sun, 24 Mar 2013 07:02:27 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72789#p72789http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72771#p72771
Yea Kris!! Finally you don't have to be in the care of someone so un-caring. Sorry it had to take 2 years for her to release the "strings" but so happy you will be able to get the proper attention you so desire. Sending healing energies and prayers you way.Peace,Karen]]>Sat, 23 Mar 2013 17:28:46 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72771#p72771http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72759#p72759
Kris,

I'm so glad you came to a decision and Dr. K isn't giving you a hard time about training the new onc for the pump. I bet you feel more at peace now. I'm really happy for you. Good luck on 4/1.

Mary

]]>Fri, 22 Mar 2013 23:55:20 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72759#p72759http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72754#p72754
I am so glad you are doing what you need to do to get kind, caring and professional care from a doctor you respect and who cares for you! Go Kris!]]>Fri, 22 Mar 2013 23:02:16 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72754#p72754http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72750#p72750
Its a great day at the house of KRIS! I am so relieved and happy and excited for you, can't wait to hear the rest of the story! Good work!]]>Fri, 22 Mar 2013 21:55:29 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72750#p72750http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72749#p72749
I heard back from Dr. Ks office. After 2 years of thinking differently, I was told if the new oncs office will agree to training, they can take over admin of the pump! Really?? Not what I've been told the past two years... But good news. I'm hoping Fox Chase is willing to get the training so I CAN get away from Dr. k for good. All the new oncs office has to do is watch the training video and be willing to order the kits. Even the glycerine!! YEE-HAW!!!]]>Fri, 22 Mar 2013 20:49:43 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72749#p72749http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72748#p72748
Kris,

Wishing you the best what ever way you decide to handle this. You deserve the best treatment and to be comfortable with your doctors. Go with your gut. When it feels right, you will know. It doesn't sound like Dr. K was ever a really good fit. Take care and good luck on April 1. Thinking of you.

Love & Hugs,Darla

]]>Fri, 22 Mar 2013 19:08:35 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72748#p72748http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72744#p72744
Kris....Dr. Siegel is at NewYork-Presbyterian/Weill Cornell. HugsMarion]]>Fri, 22 Mar 2013 18:34:35 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72744#p72744http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72743#p72743
Kris, I'm doing the happy dance that you have ditched this doctor. You deserve to be treated better than she treated you. Hoping you like the new doctor and they put a treatment plan in place that works.Sending hugs and prayers,Lisa]]>Fri, 22 Mar 2013 18:29:50 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72743#p72743http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72742#p72742
Is Dr. Siegel at Sloan?]]>Fri, 22 Mar 2013 18:15:37 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72742#p72742http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72741#p72741
Mary: Dr. Goodman is awesome! I really liked her. She did one of my embolizations and she was great about explaining everything. I have never dealt with Dr. Yoon.I love my surgeon and know Sloan is one of the best places there is for cc, but Dr. K has left me feeling like a number too many times. I also like her staff. I WILL travel up there Monday but her nurse practitioner called me and they are willing to train Fox Chase in maintaining the pump if I want to go that way.I guess maybe Dr. K doesn't like me, either!]]>Fri, 22 Mar 2013 18:14:23 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=72741#p72741