Sy’s Foodless Birthday!

Sy’s Foodless Birthday!

Who can imagine a birthday without cake–nevermind for a 4 year-old who has once again been requesting a bowling cake for the past year! (He’s already had two bowling cakes in the past!) This will forever be a birthday to remember… Sy turned 4 on July 6th and we wanted to make it extra special since our boy still cannot eat food. His request was to visit his Grammy & Paw Paw in SC and to go to the bowling alley.

I’m mostly posting these pics for anyone out there who has a child with EE. This was a great alternative to a cake. Sy loved it and per usual was all smiles!

I went to Cincinatti childrens because I am an adult with egid and ee, Dr. Kushner recommended Dr. Dellon in chapel hill NC. I have been going to him for the last year and he is wonderful. I am sure Putnam and Rothenberg will recommend someone close by, it’s scarry, I know exactly what you are going through (and Sy too). And about the medicaid, you should be able to get your local Dr. to write the RX for elecare or splash even if it isn’t in a nasal tube. Apfed has alot of recommendations on their site on how to go about getting the meds and formulas for him. It really takes a toll on the family…Good luck and let me know if I can help you with anything, I have about 6 cams of elacare you can have.