"I'm trying not to feeling anything at all," his North Carolina mother told InsideEdition.com Thursday night. "I feel like it’s not real, do you know what I mean? I’m just kind of lost.”

There wasn’t a gala ceremony with a bridal gown and a long train – just close friends and family and 4-pound Conner, who was born with three holes in his heart.

He was diagnosed in utero with Trisomy 18, a rare genetic disorder that causes an extra 18th chromosome and severe birth defects. Conner was given weeks to live, if he made it past birth.

"Our baby was a fighter, he proved so many doctors wrong, so many people wrong, by making it as long as he did," his mother, Patricia, 24, wrote on her Facebook page.

"We gave him the chance to live, love and be loved. We gave up everything to be closer to our son. We fought for Conner, and in return, he fought for us," she said.

The couple was married at a hospice center, where their tiny boy was being cared for. His family stayed there with him.

"Conner’s medicines aren’t working at helping him breathe,” she wrote at 5:38 a.m. on the day he died. "Been up watching his breathing all night, sat in the bathroom with hot shower running for an hour... nothing is working."