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I haven’t updated in a while and it’s because so much has changed in the last couple of weeks.

I resigned from my position at work to achieve my dream of becoming a nurse; to fulfill a promise I made to my mom in the last few days of her life. Although taking care of her was the hardest thing I ever had to do, mentally and physically, it was the most rewarding thing in my life. It taught me patience, acceptance, empathy, sympathy and it made me a stronger person inside and out. I started nursing school and it’s difficult – but it’s supposed to be, especially when your mom passed away just shy of two months ago. But my focus on my dream is stronger than ever, reminding myself each day that I want to help patients and their families during the hard times in their lives; just as others did for us.

We celebrated the first Mother’s Day without my mom, and it was the most difficult day of my life, second to saying goodbye to her. The days that followed brought emotions that I didn’t know existed, the day itself gave me lasting exhaustion. I was tired, irritable, sad, angry and experienced feelings I can’t even begin to put into words.

Mother’s Day is supposed to be about spending time with the woman who gave you everything, who taught you all you needed to know and more, who wiped your tears when you cried, hugged you when you were wrong and loved you no matter what. Except this Mother’s Day, it wasn’t that. She was not there to wipe my tear soaked eyes, she wasn’t there to have a glass or two of Pino Grigio with me, she wasn’t there to laugh with me or open up presents that I put so much thought into. She wasn’t there to go to a vineyard with. She wasn’t there physically and that was the hardest part.

People can tell me continuously until they are blue in the face that she is always with us, but that doesn’t change the fact that she isn’t tangible. She isn’t in front of my telling me, “Ashley, stop being a baby.” She may be with us, but physically she is not and that is something I just can’t fathom.

On Mother’s Day we tried to make the best of the day, remembering my mom in the best ways possible. We started off at church and prayed to God that she would give us some kind of sign that day. We followed it with a trip to the cemetery. It was raining and the rain fell down my face, just as my tears did. We placed an angel and flowers at her grave – two things we would never get her. First, because she hated flowers. Second, because she preferred her nails getting done more than a knickknack.

We stood there in the pouring rain and I begged her that this was a dream that we still didn’t wake up from. I stood there until I could not stand there anymore. Visiting your mom at her grave is something you shouldn’t have to do. It’s not something I should have to do. I never expected this day to come this early and I always thought she’d be around forever, making it to her mid 90s, because that is the personality she had. I never thought that I would bury my mom so early in my life.

We continued with our day and had lunch with my husband’s family. At first, I wasn’t going to attend because 1) I was too emotional 2) because it felt as if I was replacing my mom with something else and finally 3) I was worried I would break down and cry because I couldn’t have lunch with my mom.

We came home from brunch and planted a tree in memory of my mom. My in-laws bought us this tree to help keep the memory of my mom alive. We dug out a garden and planted a Flowering Dogwood. Again, she doesn’t like flowers, but seriously, the tree is beautiful. We also decorated the garden with an owl stepping stone in honor of the first sign we ever received from her and another stepping stone in her memory – “If love alone could have spared you, you would have lived forever…”

And as the days pass, it gets harder, not easier. My praying that it is a bad dream is frequent and all I can think of is how this happened. How did this happen to the women that was so strong, so resilient? We’re approaching two months without my mom and it feels like time is going so slow. Each day drags on and its one more day without her.

Between the stress, our busy schedules, and my mom not being here it seems some days it’s unmanageable. So as I struggle for answers, for support from her and for a sign – she pulls through just in time – just before I break.

Yesterday morning, I went outside and saw that our garbage was torn a part. The garbage can didn’t look messed up, and only the top bag was torn. I called my husband and told him I thought a raccoon got into it for a midnight snack. Well, to my surprise, last night my husband was outside with the dogs when he saw what in fact was eating our garbage. It was a big, beautiful white owl. (If this is the first time you have read my blog, the first sign the night my mom passed away was an owl hooting outside of our window – and days that followed we saw more owls and heard them hoot.)

When my husband texted me this, I was in class and tears instantly filled my eyes. She was listening to me. She knew I needed a sign – she knew we all needed her, three days before the two month mark without her.

This one moment, taught me overnight to keep the faith, to keep believing and to know when times are tough, she still will come through, she still will take care of us.

This week, our family and close friends attended Seymour Pink‘s 9th Annual Pasta Dinner to celebrate survivors of breast cancer, but to also remember those who lost their lives in the battle. We had two baskets raffled off in memory of my mom. Two baskets full of things she absolutely loved, including: Pino Grigio, getting her nails done, her dinners at Rose’s Family Restaurant, and the UCONN Huskies.

As we sat there and listened to the stories told and the memories shared, I realized we are not alone. There are people that are battling day in and day out to make the best of their diagnosis with their family and friends by their sides. There are families and children who lost a loved one too soon, with not enough memories to remember. There are communities who provide support and love to those affected. But most of all, there is a lot of heart and love in Seymour Pink.

They took a picture of all the survivors of breast cancer and they filled an entire side of a room. They had all these smiling faces, but their smiles were different. They smile differently then the rest of us when we receive good news. They smile because they have their life. They get to make more memories. And, that is a different smile.

As the picture of the survivors was taken, I couldn’t help but feel sad. Tears filled my eyes and I couldn’t stop thinking about how my mom was once a survivor, she was in that group of men and women, smiling because they had their life back. It was not too long ago that we cheered and smiled, because we found out my mom was cancer free. That feeling of happiness quickly subsided and we were back into the vicious cycle of breast cancer.

But, as I thought about myself in that moment of sadness the other night, I realized something. Just because mom isn’t here, just because mom can’t smile in a picture that gets taken, or just because mom can’t make memories anymore, it doesn’t mean she isn’t a survivor. Just because she lost her life to a battle that couldn’t be won, doesn’t mean she isn’t a survivor. In fact, she did survive. She survived through it all, better than any one of us could. And today, she’s surviving. She’s healthy, she’s cancer-free and she’s the best kind of survivor – she’s an angel. And that is where she will survive, forever.

My surviving angel, my mom, would have been proud the other night. We all held our composure and celebrated not just all the men and women that breast cancer has affected, but we celebrated her. We celebrated the life she lived and the memories she left behind for us.

But, when it was all over, it was real again and those feelings of sadness and missing her flooded my mind. And, today I sit here, missing her more than ever. I sit here with tears filling my eyes and wanting so badly to have her here with us. I want so badly to not have to take a picture with just the three of us. I want so badly to not have to visit her at her grave. My grief will always be there, and my sadness with always stay with me, because when you loose your mother, you loose a part of you. But, what keeps me focused and keeps me climbing to my goals and aspirations; and what helps me get out of bed everyday is that my mom was so strong, and she would want us to live our lives.

No more hospitals, no more doctor visits, no more infusion centers, no more rehab centers. No more picking and prying.

She’s coming home. We’re all coming home – to the home I grew up in. The home our family made countless memories in. And as my husband and I moved our bed, clothes, dogs and as the hospice company delivered the bed, wheelchair, walker, and oxygen – it was real. This is real.

We will take care of her in her final weeks. We will make more memories in the house that holds our secrets, dreams and hopes. It’s going to be hard, really hard – the hardest thing we’ve ever had to do; but it’s her decision and she is in control this time.

So, just like we have been – we will cry, laugh, get mad and love with everything we have.

And when I think about it – I’m mad, I’m angry, I’m frustrated, I’m overwhelmed. A miracle doesn’t exist. Instead, this cancer exists and it’s taking something away from all of us. I’m struggling to find my faith, I’m struggling to understand why and how this has happened to our family.

And the worst part is as I think about what’s to come – my future kids will never meet the woman who I call my hero. My mom won’t be there to tell me I’m swaddling wrong. My mom won’t be there to babysit and spoil our children.

I know, life isn’t fair. Life isn’t perfect. But it should be. Bad things shouldn’t happen to good people. And there should be a cure for this disease.

While I watch my mom process this, this new reality, she’s hurting. She doesn’t want to let go. She doesn’t want to miss what’s to come. She doesn’t want to die. She’s not ready. And we’re not ready.

So, today we sit in silence waiting to be told when she can come home. We’re ready for her to come home, but we’re not ready for what’s to come.

This is changing me. This is changing all of us. And I’m scared. I’m scared I’m not going to take care of her the right way. I’m scared of being without her.

I love you, Mom and I am so proud of your strength and perseverance. You’ve been through more than anyone can imagine. You will always be my best friend.

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Today, March 3, is Triple Negative Breast Cancer Day. It was started by the Triple Negative Breast Cancer Foundation to raise awareness for this aggressive type of breast cancer. About 15-20% of breast cancers are triple negative, meaning tumors do not respond to a receptor-based treatment plan and have more of a chance to recur than other subtypes.

Every breast cancer my mom has had throughout her life has been triple negative. We have beat it and survived it. But, this time, this has been a challenge we were not ready for. This diagnosis has changed our life – how we live, how we think, and how we act.

As I’m writing this, I have tears rolling down my face – this being the first time in a while that I’ve cried it all out. Today was a difficult day and it seems like each day is becoming more of a challenge for all of us. Transporting her to doctors appointments at Yale – Smilow Cancer Hospital has become more and more difficult. My patience, strength and hope are being tested in ways that I didn’t know were possible. But, we are still all holding on – holding on for that good day, that moment her personality comes out from hiding behind the cancer, that miracle we’ve been so desperately hoping for.

She has become weaker each day, when we believe she should be getting stronger. Physical and Occupational therapy is done every day – but she can’t lift herself up, she can’t walk, she can’t dress herself. She has always been an independent woman, and I can’t imagine what this feels like for her. She has no control over anything any more – not when she eats; when she gets up to go to the bathroom; when her next doctors appointment is; when she will get ready for bed. And she doesn’t have any damn control over her cancer.

We used to call her a control freak. (I know, that’s harsh, but I swear she enjoyed it.) She used to keep the house in tip-top shape, cook dinner every night, do laundry and iron our clothes each night – all while working full time. She kept track of all of our doctors appointments, medications and needs. I see her in myself a lot of the time. She instilled in me the values of keeping a clean house, being a good cook and being organized. I’m sure my husband refers to me now as the control freak.

As a lymphedema specialist examined her arm today, and wrapped it, I thought how much more of the poking, prying, and examining can she take? How much more can all of us take? As I looked at her swollen arm, my heart broke. It broke because as if the cancer wasn’t enough, she has a swollen arm that can barely move and a drainage bag for her tumors that she now carries as her purse. But when you ask her how she is doing, she says fine. Whether she is lying or exaggerating – it shows her strength. She’s strong and that’s why she is the person I look up most to. She carries herself with grace, even though this whole cancer thing sucks.

On our way back to the rehab facility, I turned, looked at her and started to cry. I said, “Mom, what is going on? What are you feeling? Please talk to us.” She didn’t say anything for a few minutes. But then she did and what she said broke me even more. Now, I’m not going to tell you exactly what she said, because I don’t want anyone to get the assumption that she is giving up, but this battle is taking everything out of her.

And, I am scared of loosing my mom. I’m scared of what that feels like. I’m terrified of her not being here for me to call to ask questions, like how long to cook the chicken; or calling her a millions of times a day just to tell her what happened each minute play-by-play. I’m scared of loosing the woman who has made our family so perfect.

So today, and every day that you can, remind yourself of the need to find a cure. Remind yourself that you’re not alone if you’re dealing with this and it is okay to be scared.

And most importantly, remind yourself to live each day to the best that you can.

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When I was 18 years old I got a tattoo on my ribs saying “Live. Laugh. Love”. It is a sentiment that I believe will guide me through life. It will help to remind me to live in the moment and live for the reasons that truly matter.

But at 18 years old it meant something totally different. It meant to enjoy life by hanging with my friends, to laugh at jokes and to love a cute boy. Shallow, it may have been, but I was young and naive. Life wasn’t real. It wasn’t hard.

As I grew up and matured, and life got hard, I realized my tattoo was something that meant a lot more. It was there to guide me. To keep me on the right track. And when it all clicked, it helped me.

So, what does Live. Laugh. Love. mean? Now, as my family and I are going through the hardest trial of our lives, that $100 dollar tattoo has a voice in my head. It keeps me grounded and it keeps me pushing forward.

Live.

To me living is about having no regrets. Making sure I spend as much time with my mom as possible. Making sure I keep making memories with her. Every day is different, there are good days and bad days, but each day is a blessing.

When the doctors said, time is limited and to be ready for the next step whenever that may be – I didn’t believe them at first. To me, I was still 13 years old giving my parents a run for their money as my teen years started. To me, I was 16 and still laid with my mom in bed at night watching our favorite shows. To me, I was 18, in college and wanting to come home. To me, I was 20, waiting for one more year to be able to enjoy a glass of wine with my mom. (I know I talk A LOT about wine, but how could you not?) To me, I was still a baby who needed her mom to rock her, tell her it would be okay and to kiss her before she fell asleep.

But, here I am, 24 years old, the roles have reversed and I am taking care of my mom. I am spending every day talking with her, because we never truly know when our time is up. I look at my mom’s diagnosis as a blessing in disguise – a puzzling disguise. Many people have no idea when their loved one’s time is up. But, we, we get to make the most out of every day. I have spent more time by my mom’s side than ever before. I have learned more about her each day – I have learned more about her strength, pride, dignity and love. And most importantly I have watched my parents fall more in love. My dad doesn’t leave my mom’s side and he takes care of her as much as he can. He goes home to eat, sleep and does it all over again.

So, we’re living to the best of our ability. Some days are harder than others, but we have each other. And when I go home at night, I thank God for the day.

Laugh.

We laugh, a lot. We laugh about the changes we’re experiencing.

We laugh about my dad learning how to do things on his own – except for dressing himself and knowing what size he is. He’s still not very good at that. We laugh about the food my mom is served at the rehab facility. Is it dog or cat food? We laugh about the “friends” she’s making – some may be nuts, but it keeps it interesting. We laugh about the crazy things that happen. But the best part is we laugh together.

In my last post, I talked about my mom’s infectious personality. She has always been outgoing and the loudest in the room. I always envied her ability to walk into a room and command attention. She could talk to a wall and laugh with a rock. She could make light out of a serious situation. She would crack a joke in the middle of an argument and I no longer could be mad at her. She would blow her nose and everybody would turn, look and just laugh. Because really, you HAVE never heard anything like it. I promise.

But I think that’s what has kept me strong 75% of the time is the ability to laugh. When I look at her I see the person who has taught me to laugh at my mistakes, the person who has showed me that life is too short to be anything less than happy, and the person who has told me over and over again to stop being so god damn up tight.

So as we go through these changes, we turn to laughter as a drug to cure our hurt, sadness and fear.

Love.

Love is strong. The love I have for my mom is indescribable. The love I have for my family could never be explained. So love is one of our drugs of choice.

When our worst nightmare became a reality two months ago, all I could say was that I wasn’t ready. My mom is supposed to be there for everything. I call her a gazillion times a day, asking her every question under the sun. I just love her so much. Our phone calls used to be lengthy and we would talk, now they’re short and there isn’t really anything said, but one thing you can hear is the love we have for each other. Things may be different, but our love has only grown.

About a month ago, we were sitting in her hospital room at Yale – Smilow Cancer Center and my dad and I were sobbing. My mom sat there composed and starred at the wall. We were begging her not to leave us any time soon. We were begging God to not let any of this happen. And I stopped crying for a minute. In that moment I realized, as hard as it is for us, it’s even harder for her. The one thing that could bring us through this was love.

I am the luckiest daughter in the world because my parents have inspired me every day. Growing up, I love you’s were said as many times a day as possible. Love was something that flooded through our house. And today, love is something that sweeps my mom’s rehab room. And every day when we talk and when I see her, I say I love you.

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My name is Ashley Dayton and my mother has Stage IV Triple Negative Breast Cancer. I started this blog as a way to share our story in hopes to help others – but more importantly as a way to release my hurt, anger, frustration and fear.

At 40 years young, my mom’s dream of having a child came true. She gave birth to a beautiful (I may be bias!) little girl, who was a spitting image of her father. I had the best childhood as an only child. Hugs were always there to heal my hurts and her words always encouraged me to try again. She cheered me on at every sporting event and never missed one. She taught me life lessons when I made mistakes. Most importantly though, she always made sure I had fun. People always ask me, did you like being an only child? My answer is ALWAYS yes, because I didn’t have to share all the love my parents gave me with anyone else.

Because of her, I know that I can always love more and strive more. She raised me better than anyone could have raised me, loved me unconditionally, let me learn on my own but always caught me when I was about to fall. She has seen me through the good times and the bad and always has been there when I needed her the most. Like when I would call her at 2 AM saying I wanted to come home because my bed was more comfortable than the floor OR when she bought plane tickets for me once a month for a year so that it would make my homesickness a little easier.

But in September 2012, our world changed. My best friend, the strongest woman I know; my mom was diagnosed with Triple Negative Breast Cancer and opted for a double mastectomy. After a surgery that seemed like a lifetime she was on the road to recovery. She went through rounds of chemotherapy and radiation. She laid in a hyperbaric chamber weekly – hoping and believing that this would cure her. This would cure our family. And it did, for a year, or we thought it did.

In January 2014, we embarked on what we thought would be her final surgery. A way to close the hurt we felt. She underwent a 22 hour reconstruction surgery. Physically and mentally exhausted we were thankful it was over. I thought, my mom is back. She is going to drink wine with me, instigate my shopping habit and be cancer-free. But a couple days later, it all changed… once again. The next chapter was being written and we weren’t ready.

The doctor said – “I’m sorry, but I found something that just didn’t look right during the surgery. I sent it out to be biopsied and it hurts me to tell you this, but it’s cancer.” I sat there with my mom next to me, in awe. Tears started rolling down my face. I started sobbing. This was truly the first time I was scared. I was scared for my mom and my family. How could we go through this again? We had a plan. We would take a family vacation, we would drink wine, we would laugh.

It turns out there were two tumors, one behind her breast bone and one on the left side of where her breast used to be. It was once again Triple Negative Breast Cancer, and a different form. Each tumor reacted differently to treatments. At this point we asked not to know the stage, for fear it would only feed our mind with ammunition. Instead, we were going to beat this, just like we had so many times before. (Note: My mom was first diagnosed with breast cancer at age 46 and had a lumpectomy – but this story is not about the first time, it’s about the last time.)

Breathe. I remember telling myself every time there was a doctor appointment. Breathe. Every time there was a scan. Breathe. Every time there was a test. Breathe. Breathe.

I would tell my parents, I hate your doctor. He isn’t doing enough. He isn’t giving us options. He isn’t giving us support and he sure as hell is not fighting with us. And then, when the tumors kept growing and the treatments kept not working – we arrived at Yale – Smilow Cancer Hospital – looking for help. Chemotherapy was the answer, but there were options. There were trials. There were different forms of chemotherapy – an injection, a pill, etc.

But we still had hope. There had to be a cure, because any one who knows my mom knows she’s a fighter, she has a personality that cannot be copied and a laugh that is infectious. She is a positive person, that always believes there is something to be thankful for.

As 2015 came to an end, I prayed that 2016 would be different. A cure would be found and we would put this behind us, again. We would move on.

2016 began and the only piece of my prayer that was answered was that 2016 would be different. Different is an understatement. Hard is a better statement. In January 2016, we found out this year would be the hardest of our lives. My mom’s cancer was Stage IV Triple Negative Breast Cancer and there was no cure. There were options for treatment that could help keep the tumors at bay, buying us time. But we had to understand that our life would be different from that moment in January.

In and out of Yale Smilow Cancer Center, my mom would say her name was Susan “Yale” Trabka. Giving us a laugh, or two… But the reality was my mom was sick. The funny thing is I never thought of her as sick before this. Before this, she didn’t even have cancer (in my mind) it was just a couple tumors that needed attention. I was in denial. We were all in denial. We were blinded.

We were told our time was limited. And all I could do was cry. We all cried until there were no tears left. My mom, the matriarch of our family, the glue that holds us together, was really sick and there was nothing we could do.

But there was something we could do. We could enjoy our life with her. We could laugh, we could cry and we could sit in silence. We could create memories that would last forever. And so we did. My boyfriend at the time, now husband, proposed and we planned a wedding in 26 days. My dream, my mom’s dream, my dad’s dream and my husband’s dream came true – having my mom see me marry the man of my dreams. The man that would take care of me. The man that would take care of all of us.

This is where my blog begins.

Mom, you’ve been through more than anyone can understand, but through it all you’ve kept a smile on your face. Through surgery after surgery and treatment after treatment you’ve somehow always found a way to laugh. You’ve taught me life isn’t always as bad as we think it is, instead it teaches us to be stronger.

Mom, thank you for being my best friend. I couldn’t begin to express everything you have done for dad and me. You have been a solid rock for me during every hard time – always willing to listen and do whatever you can to help.