Wednesday, October 27, 2010

So...

I couldn't think of a title to this post b/c I still haven't wrapped my mind around all of the new information that was thrown at me during yesterday's appointment with the genetics Dr.

One thing I want to update on right now is that he does not agree with the anhidrosis diagnosis alone. Jayden isn't sweating anymore, so clinically it is anhidrosis, however, the Dr does not feel that it has anything at all to do with Jayden's medications. Instead, he thinks that we need to dig deeper b/c it is possibly being caused by something that we are not seeing. So he's having a skin biopsy done on tomorrow afternoon :( Also, he is being scheduled for another MRI asap due to the fact that his seizure activity increased in May, we noticed the lack of sweat this summer, and he started regressing in April. Please keep Jayden in your prayers.

Welcome to our blog!

Thank you for visiting our blog! We are happy to share a little bit of our lives with you. After years of battling infertility, we adopted our son, Jayden, at birth and 5 years later I gave birth to our newest addition, Elias. God is so good!!

This blog is a mixture of personal thoughts, daily battles and triumphs with Jayden's health, and about our experiences as a family of 4. So sit back and enjoy our crazy life!