Your Heart and ACHD

Understand your adult congenital heart disease (ACHD) and find the recommended care, treatment and support you need throughout your life.

The most important step in managing your congenital heart disease (CHD) is to know the name of your defect, know what it means, and be able to find the recommended doctors and care options. The Adult Congenital Heart Association’s Clinic Directory, health information and research can help.

- Sareet B. Massachusetts

"I found out the hard way that having a heart defect meant having a lifelong challenge, and that there will always be something to worry about. That was when I found out about ACHA, and it was great to meet other people with CHD who had been through such similar experiences! It was nice to know I wasn’t alone."

- David B. Pennsylvania

"Life in general is a gift; I was born with an additional gift, my congenital heart disease. Because of, it I am not weaker, I am stronger. I am not disabled, I am able. I am not a quitter, I am a fighter. Becoming a member of the ACHA was like becoming a member of a second family, a family of several people that have walked in my shoes, a family that we all can relate to physically and medically, a family that stretches throughout the world."

Health Information tailored for adults living with the congenital heart defects. Our resources cover specific heart defects as well as aspects of living life with CHD, including FAQs and access to our extensive archive of webinars.