Hi my name is Heidi and I have Familial Adenamatous Polyposis (F.A.P.). At thirteen years old I had genetic testing done to see if I tested positive for the F.A.P. gene. The reason why I was tested and especially at 13 was that my mom was diagnosed with F.A.P. at 19...

My journey with F.A.P. begin in the winter of 2007. I knew well before then that there was a possibility I could have it. My dad was diagnosed 20 years prior and after genetic testing it was confirmed that I had this awful disease. From that day forward my life...

My FAP journey began in the summer of 1992. That summer was supposed to be a special time for me, I was about to marry the woman of my dreams. Instead it turned out to be the start of nightmare. After going to the doctors for the second time because of hemorrhaging I...

I was diagnosed with FAP syndrome in 2005. Up until recently, I held on to this belief that it was a part of my identity. I blogged about it for a couple of years, I wrote a memoir, and most people who know me know that I have it. I thought that it was part of who I...