The journey of a little girl living with Nemaline Myopathy

Rosie’s Charity Ball – 16 June 2017

Save the date – Friday 16 June 2017

I am totally delighted, extremely excited and incredibly proud to announce that on the evening of Friday 16th June 2017, Rosie’s Charity Ball will take place at Clevedon Hall nr Bristol – and you’re invited!

This black tie and ball gown dinner and dance is already shaping up to be a pretty spectacular event and guests can expect; a refreshing welcome drink, sumptuous three course meal prepared by a Michelin-trained chef, fantastic live music and a special charity raffle/silent auction – fun is a given!

As with any event of this scale we would welcome ANY HELP you may be able to offer, for example:

Come to the ball – limited tickets are available and are offered on a first come first served basis. Tables of ten are available. We would love to share this special evening with you.

Become a charity sponsor / offer a service – and help give this event the charitable boost it needs whilst making it the best night ever! In return we can offer wide-spread promotion for your / your company’s support.

Donate a raffle / auction prize – take a look at our new website for ideas about the sorts of things we’re on the lookout for.

Spread the word –please have a think about anyone you know who may be able to help with the above if you are personally not able to. Please help us to spread the word about Rosie’s Charity Ball and raise as much as we can for Muscular Dystrophy UK. Please get us a step closer to finding a cure for Rosie and others like her.

Visit our new website: www.rosiescharityball.co.uk for all the details and please don’t delay in getting in contact if you think you can help! Thank you in advance!

All the proceeds for this event will go towards the total amount raised for my Mount Kilimanjaro trek later this year (which I’ve now started called #KilimanjaROSIE – cheesy I know!). I’ve just set up my charity giving page where you can read why I’m doing it.

In February, I enjoyed a rare Saturday night out with a couple of friends I met through an antenatal group back in 2013/14. The wine flowed and half way through the night our conversation turned to the subject of my Mt. Kilimanjaro trek. My two friends Katherine and Grazyna asked how they could support me.

L – R: Grazyna, Katherine & I

I explained how fundraising was one of the biggest tasks ahead and we promptly started exploring ideas and suggesting ways this could be done. It wasn’t long before the words ‘charity ball‘ were spoken.

All three of us started getting really excited about the prospect of dressing up in our finery for a charitable cause. Charity events in Clevedon are generally family fun days or informal pub nights, so we really wanted to create a prestigious event at a spectacular venue and give people the chance to dress to impress and dance the night away.

The wine flowed a little more (I was to regret that final glass the next day!) but woke up with a notepad full of our drunken ideas – some fantastic, many off the wall, some I couldn’t even read my own writing, but we’d formed a plan and got the date in the diary for our first Rosie’s Charity Ball committee meeting. We met the following weekend and that was it – we were off!

Two weeks later we’d been to visit three fabulous venues and subsequently chose the beautiful Clevedon Hall, a grade II listed 19th century mansion!

We would LOVE your help in making Rosie’s Charity Ball a HUGE success. Please take a look at www.rosiescharityball.co.uk and let us know if there is anything you can support us with – we’d be so grateful.

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My Weak Muscles

Here you've found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.