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Senators Cassidy (R-LA) and Graham (R-SC) introduced a new bill last week to repeal and replace the Affordable Care Act. This bill would make huge cuts to the Medicaid program, end the Medicaid expansion and marketplace subsidies in the Affordable Care Act. It would also allow states to waive protections for people with pre-existing conditions.
This bill would be devastating to people with disabilities and their families and threaten access to community living, employment opportunities, and educational supports.
This is time sensitive. Last month the Senate parliamentarian stated that the deadline for the current budget reconciliation process is September 30. This means that if voted on before September 30, this bill could pass with a simple majority – with fewer votes. Senator Cassidy claims to have 48-49 senators on-board. Senator McConnell has asked the CBO to produce a score quickly. We must act in the next 48 hours.

Email your Representative and urge them to support the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act, which would lead to the creation of a national strategy to support family caregivers who enable people with long term needs to live independently in their homes and communities.

The President’s FY 2019 Budget Request eliminates funding for the Health Resources Services Administration (HRSA) Autism CARES Act programs. This $47 million cut includes the $31.3 million appropriation for LEND programs. The national network of LEND programs would be eliminated.
LEND directors, health professionals, trainees, families and allies must educate their Members of Congress about why this training program is important and why it must not be eliminated.

The President’s FY 2019 Budget Request cuts the funding for UCEDDs by $6 million from $39 to $33 million, or more than 15%. In fact, a $5.5 million increase over the expected FY 2018 level is needed to meet the growth of scope of work as related to assisting states to effectively implement recently enacted Federal laws, and the growth of need around autism, Zika and neonatal abstinence syndrome.

The President’s FY 2019 Budget Request cuts the funding for UCEDDs by $6 million from $39 to $33 million, or more than 15%. In fact, a $5.5 million increase over the expected FY 2018 level is needed to meet the growth of scope of work as related to assisting states to effectively implement recently enacted Federal laws, and the growth of need around autism, Zika and neonatal abstinence syndrome.

The President’s FY 2019 Budget Request eliminates funding for the Health Resources Services Administration (HRSA) Autism CARES Act programs. This $47 million cut includes the $31.3 million appropriation for LEND programs. The national network of LEND programs would be eliminated.
LEND directors, health professionals, trainees, families and allies must educate their Members of Congress about why this training program is important and why it must not be eliminated.