Publications

Alpha-1-To-One magazine

Alpha-1-To-One is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

The Fall 2014 issue includes the story of Alpha Doc, Robert “Sandy” Sandhaus, MD, plus these stories:

The inspiring story of Alpha-1 athletes, who despite health challenges, build awareness with athletic feats; Alpha-1 Global launches its web platform to serve Alphas around the world; and the story of the Freitags, a normal family coping with the challenges of raising children with Alpha-1.

Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."