It's been quite an adventure raising a now-teenager who was diagnosed with diabetes just after her first birthday! Please realize that what you'll read here is not intended as medical advice; it's just the ramblings of a sleep-deprived mom. Always consult your medical team about your treatment options, but do stop by from time to time for a bit of perspective.

Worried

This whole UnitedHealthcare/Medtronic thing has put me through a string of emotions this week. Disbelief and anger batted leadoff. Determination followed, with a string of advocacy actions which are still ongoing. Sadness made an appearance along with despair. Now, the more I think about it, the more worried I get.

I'm worried on a personal level, as a UHC customer, that my kid will lose coverage for the tools she uses all day every day to manage her diabetes. Pediatric patients are currently exempt but there's no guarantee they always will be. I've also heard she's likely to turn 18 sooner that I'd like, and then she'll be required to switch. Then what happens? Do we fight for an exemption? Do we (could we afford to?) pay to go out of network? Do we bite the bullet and learn a whole new system and try to make it work for her? Diabetes is hard enough without having to do any of these things. Would her blood sugar control suffer as a result? Even if eventually we learned a new system, it would take a while and the learning curve would inevitably impact her blood sugar numbers.

I'm worried that this is just the first of the surprises in store for us. Why not make us use another brand of CGM? Why should they allow us to go to a doctor across the border in another state when there's one just down the street who is, on paper, exactly the same? Does she really need to test 8-10 times per day? Surely not...5 or 6 strips per day should be plenty. Lab work again so soon? Nah- just get it done once a year no matter the results.

I'm worried because this decision represents another big step in the elimination of healthcare choices for patients and their doctors. UnitedHealthcare is a huge insurer. They can't be the only one going down this road when it comes to durable medical equipment. Companies have already been down this road for pharmacy benefits, physician choices and more. Wherever we turn for insurance our choices will become increasingly limited. And for those without the means to go out of network or pay a higher copay for a different doctor, tier of drug, or medical product, choices are disappearing entirely.

I'm worried about the 'big brother' language in the information about this agreement. “UnitedHealthcare and Medtronic are working together to better serve people with diabetes by combining their collective resources, data and expertise," an e-mail statement from United Healthcare's corporate communications spokeswoman, as quoted in a Diabetes Mine overview of the situation reads. "This will include assessing how the combination of advanced technologies and patient support programs can improve care plans for individuals using insulin pumps... we aspire to bring a value-based approach to diabetes care that tracks clinical outcomes for UnitedHealthcare members on insulin pumps and places greater focus on quality rather than the volume of care delivered." My insurance company wants to track my child's 'clinical outcomes' to improve her 'care plan?' Maybe we don't need to go to the doctor at all then. See also: privacy, numbers don't tell the whole story, I thought giving consent to be part of a study was an ethical mandate, and maybe if she could choose the best tools for her those outcomes would be better and we wouldn't have to improve her care plan.

And what about innovation? I'm worried that if there's no competition for customers, because customers don't have a choice, companies won't invest in research and development. Until Tuesday we were keeping our eye on Tandem. We were interested in the pump and in any technology they might develop in conjunction with Dexcom. We're not due for an upgrade anytime soon, so these were fleeting thoughts. But the speed at which so many companies seemed to be innovating made us very interested in seriously investigating, and talking with our endo about, a variety of products when the time came. Now it looks like we're stuck with Medtronic who, since we don't have a choice, can provide whatever products it chooses and innovate at whatever speed it chooses.

I'm worried, in what is now broadening out to a philosophical way, about the state of the healthcare system in our country. How, in what's billed as the most technologically advanced nation in the world, are people stuck with no choice in the technology they can use? How, in a free market economy, can we accept losing the freedom to choose our own products? How, in a nation of checks and balances, have we gotten to the point where giant corporations have control over our personal health?

I'm worried.

I was grateful last night to have
chosen this technology, when I was able to use the
meter remote to deliver a correction bolus
to my sleeping child from across the room.

About Me

I've been writing Adventures In Diabetes Parenting since early 2011. It's written as a glimpse into our family's life with Type 1 Diabetes. I also dabble in writing about parenting, food, gardening and much more.
I can be reached at adventuresindiabetesparenting@gmail.com