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So, I go back to the ENT this past Tuesday to get the results of my CAT scan on my neck/head to find the reason for the lump in the floor of my mouth (I was thinking salivary stone). The CT scan showed no stone but slightly enlarged submandibular glands on the right (where I have the lump). So, I'm thinking "Yay..just a infection!!..."

However, the CAT scan showed what the radiologist thought was a mucocele in the right maxillary sinus that eroded away my bone. The ENT was concerned because it had totally eroded through the lateral posterior wall of the sinus. So, he sent me to a oral surgeon to rule out anything dental causing the problem.

I saw the oral surgeon yesterday who took several panoramic views of my teeth that were inconclusive of bone loss but did show that almost all my teeth had cavaties in them AGAIN (thank you Sjogrens!!!). He seemed very concerned and kept saying that it was not dental related.... that it was "something else" but wouldn't elaborate on what the "something else" was when I questioned him. He would just answer with why it was not dental related but not answer what it could be related to...very frustrating!

He told me I needed to return to the ENT. So I left, but then when I was driving home his office called my cell phone and said he wanted to see me again this morning.

I go back this morning where he examines me again and then tells me he is sure it is not dental related but wouldn't eleborate on what he thought it was. Only that he would talk to my ENT and someone would call me next week.

Nothing is ever simple in a autoimmune life, is it? I remember when I use to get sick or have a problem and just a regular visit to the family doctor would answer my questions, take a pill and get well....

those days are long gone,

Lisa

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12 Replies |Watch This Discussion | Report This| Share this:My never simple life...So, I go back to the ENT this past Tuesday to get the results of my CAT scan on my neck/head to find the reason for the lump in the floor of my mouth (I was thinking salivary stone). The CT scan showed no stone but slightly enlarged submandibular glands on the right (where I have the lump). So, I'm thinking "Yay..just a infection!!..."

However, the CAT scan showed what the radiologist thought was a mucocele in the right maxillary sinus that eroded away my bone. The ENT was concerned because it had totally eroded through the lateral posterior wall of the sinus. So, he sent me to a oral surgeon to rule out anything dental causing the problem.

I saw the oral surgeon yesterday who took several panoramic views of my teeth that were inconclusive of bone loss but did show that almost all my teeth had cavaties in them AGAIN (thank you Sjogrens!!!). He seemed very concerned and kept saying that it was not dental related.... that it was "something else" but wouldn't elaborate on what the "something else" was when I questioned him. He would just answer with why it was not dental related but not answer what it could be related to...very frustrating!

He told me I needed to return to the ENT. So I left, but then when I was driving home his office called my cell phone and said he wanted to see me again this morning.

I go back this morning where he examines me again and then tells me he is sure it is not dental related but wouldn't eleborate on what he thought it was. Only that he would talk to my ENT and someone would call me next week.

Nothing is ever simple in a autoimmune life, is it? I remember when I use to get sick or have a problem and just a regular visit to the family doctor would answer my questions, take a pill and get well....

I am so sorry, maybe they will have an awnser now that you went to the dentist and ruled that out. well it is good it isn't in the bone,

I know that it is hard to be patient with autoimmune life for sure, go to this Dr. then that one and then another. I am dealing with that now but I am just being patient.....what ealse is there to do rite.

I really hope they will be able to give you an awnser on this next trip to the ENT.Good luck and keep us posted ok.Love, light and hugs,Pug

Even if you fall on your face,
you're still moving forward.
Victor Kiam

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Report This| Share this:My never simple life...I am so sorry, maybe they will have an awnser now that you went to the dentist and ruled that out. well it is good it isn't in the bone,

I know that it is hard to be patient with autoimmune life for sure, go to this Dr. then that one and then another. I am dealing with that now but I am just being patient.....what ealse is there to do rite.

I really hope they will be able to give you an awnser on this next trip to the ENT.Good luck and keep us posted ok.Love, light and hugs,Pug

Next week???? NO... (Insert swear word here)...way!!! I can't imagine how frustrating that must be for you! Why were they so cryptic? Don't you just hate it when doctors, or, anyone else for that matter, won't give you a straight answer? It's like a never ending rollercoaster ride, isn't it?

Hang in there Lis! I will be keeping good thoughts for you!

((((hugs))))

lupylisa

With love, with patience and with faith, we'll make our way.

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Report This| Share this:My never simple life...Next week???? NO... (Insert swear word here)...way!!! I can't imagine how frustrating that must be for you! Why were they so cryptic? Don't you just hate it when doctors, or, anyone else for that matter, won't give you a straight answer? It's like a never ending rollercoaster ride, isn't it?

Doctors use the "vague answers" when they are unsure of the problem, but are afraid that it will not be good (i.e. cancer) and don't want to alarm the patient unnecessarily before they can rule it out. And I guess with some patients that would be a good thing but I prefer my doctors to be direct. I'm not a idiot (at least I hope not...would a idiot know if they were a idiot??? ) and prefer my doctors to tell me what they are thinking.

Doctors use the "vague answers" when they are unsure of the problem, but are afraid that it will not be good (i.e. cancer) and don't want to alarm the patient unnecessarily before they can rule it out. And I guess with some patients that would be a good thing but I prefer my doctors to be direct. I'm not a idiot (at least I hope not...would a idiot know if they were a idiot??? ) and prefer my doctors to tell me what they are thinking.

Thanks for kind words. Some days are just harder than others...guess that's just the way life is. I don't feel that they are giving me the run around, I'm more frustrated that a easy answer never seems to happen to me. One problem just seems to lead to another and another ad infin.

Thanks for kind words. Some days are just harder than others...guess that's just the way life is. I don't feel that they are giving me the run around, I'm more frustrated that a easy answer never seems to happen to me. One problem just seems to lead to another and another ad infin.

I did ask if it could be cancer and his answer was "let me talk with the ENT and discuss some things with him and decide where to go from there"....I asked specifically if he would be treating the problem and his answer was the same reply....I asked what my next step should be and if surgery was in the picture...reply was the same. He would only expand on why this had nothing to do with my teeth.

Oh well, just another hurry up and wait situation. I ought to be use to this by now.

I did ask if it could be cancer and his answer was "let me talk with the ENT and discuss some things with him and decide where to go from there"....I asked specifically if he would be treating the problem and his answer was the same reply....I asked what my next step should be and if surgery was in the picture...reply was the same. He would only expand on why this had nothing to do with my teeth.

Oh well, just another hurry up and wait situation. I ought to be use to this by now.

I bet you are sp frustrated and worried!!! I guess he really does not know and needs to consult with the other guy. But still........why is it not important enough to call him sooner and thus help you sooner?????????? A lot of docs used to do that--not so much anymore it seems.

All I can do is PRAY for you and the wait!! And I am here for you anytime, please call on me. I am stupid, but I have ears!!

I bet you are sp frustrated and worried!!! I guess he really does not know and needs to consult with the other guy. But still........why is it not important enough to call him sooner and thus help you sooner?????????? A lot of docs used to do that--not so much anymore it seems.

All I can do is PRAY for you and the wait!! And I am here for you anytime, please call on me. I am stupid, but I have ears!!

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