Experience Tips Real Life Solutions

Relapsing

Tingling, tremors and brain fog! Oh my!

That’s been life these past 3 days including the usual loss of balance, blind spots and falling asleep standing up! Yikes!

I started a three day course of solu-medrol and finished it today. It’s my third treatment in six months. I haven’t really seen a huge improvement with this treatment – ever. I still have the symptoms that originated 6 months ago plus some more. Has anyone else had this experience with solu-medrol?

For me, solu-medrol is a sedative. I fall asleep during my treatments and I am really lethargic the rest of the day. I also get the metallic taste and for me it lasts and lasts as well as nausea.

If this treatment doesn’t solve anything in the next month or so, my Neurologist is going to put me on a clinical trial. I will let you know what it is when I find out and tell you if it’s something worth checking out.

About My Life With MS

Hi!

Welcome to my MS world. I was happily clicking along in life when I had an acute onset of MS in 2005. I was stunned, shocked and left in bed for 6 weeks unable to walk or see. I went into remission and changed my life.

At first I felt sorry for myself:

I was a single mom of a 4 year old

tried to maintain a small house

hold a job

get healthy

manage all the responsibilities I had

I was determined to be positive about my new situation. I refused to let MS take over my life so I embarked on something totally out of character for me…I trained for a triathlon. It was an amazing experience.

Life started to turn around until July 2007 where I had relapse, after relapse, after relapse with the probable prognosis of Secondary Progressive MS. Not exactly what I wanted to hear.

With that news, I needed to change my life again. I quit my job because my body couldn’t handle the physical stress and looked for a job I could do from home. Now I am on a new journey. I work from home as a freelancer and I hope to try and help others find meaning and purpose in their lives when MS tries to take over.