is the story of one family's journey through life with a very special child with Down syndrome and a complicated medical history and how we have learned to DANCE through the tulips.

Sunday, June 21, 2009

Oops

Did I speak too soon? Well, Chloe was VERY fussy this afternoon. I tried to put her down for a nap and she screamed!!! Later I vented her stomach to get any air out and the stuff that came out of her stomach made me think maybe her belly hurts. Nothing too gross, just looked a little "unsettled". She finally fell asleep at about 5:45pm and we let her sleep for 45 mins before needing to leave for a Father's Day dinner at my mom's (HAPPY FATHER'S DAY to all my favorite dad's out there!!!). She's been acting weird all night. Smiles alternating with fussing (she does NOT fuss - ever). She's been sticking out her tongue a LOT and she doesn't do that a lot either. No temp although she felt a little warm, but my thermometers are acting funny. So we'll see how things go overnight. Teeth? Ears? Tummy? Only time will tell. . .

Pray for Dillon

About Me

I am a 44-year-old woman whose life changed when I learned my third child would be born with Down syndrome. Right away I knew that our lives would be changed forever, I just never in my wildest dreams could have imagined it would be like this. This is my family's story.
In the months preceding the start of this blog, starting when Chloe was just 6 days old, she had 7 hospitalizations, 1 open-heart surgery, and 1 g-tube surgery. She was the youngest child at our hospital to ever be put on CPAP at home for Severe Obstructive Sleep Apnea. She had a TINY opening to her airway and therefore frequently suffered from upper respiratory incidents. Chloe also had GERD and was being considered for a Nissen Fundoplication. But she is an AMAZING fighter and the happiest girlI've ever known!