Installations

The current installations have been created to depict what a skin disease sufferer goes through during a flare up and allow people to engage and feel the essence of what a sufferer endures.

Future installations will involve collaborations between artists and skin sufferers producing interactive and passiveinstallations conveying the complex physical, and emotionalstates of a skin disease sufferer.

Due to my hands being affected by my ailment I sometimes only have the use of my voice to guide a person to produce my feelings.

People would often ask me how I was feeling, or why I can’t stop thinking about my skin and stop scratching or just ignore it and try and do normal tasks. To the outside world all they saw was the redness in the skin or my skin hidden in bandages. Skin disease is absolutely not a superficial ailment, but rather one that can cause serious physical pain, distress and incapacity. I would always describe the feeling as below

Picture This...

Your skin is burning and stinging as if it is being burnt by hot flames. At the same time imagine that splinters of glass are being injected into your body. Now try to imagine your state of mind. If you can't, then visualise a room full of tangled wires, and you can't find your way from one end of the room to the other...

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The prevalence of skin disease exceeds that of obesity, hypertension, or cancer. Despite skin being the largest organ of the human body, dermatological research remains one of the most under funded areas of medicine. In a world where society has an increasing preoccupation with image and it’s importance to every aspect of a person’s life, sufferers of skin diseases are feeling and being more marginalised and isolated than ever.

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