Friday, January 20, 2012

Day 10 at CHOP

Another day, another blog.

Today was another good day. Dillon has been great all day. They started him on 18ml per hour instead of the 36 that would be a full amount. He has handled his food fine all day. On rounds the doctor said we would probably go home on Monday. Then later she came in and said that as long as he stayed stable we can go home on Sunday.

We placed calls to get him a food pump so he can go home on continuous food. They plan to keep him this way until he is fully recovered and able to see GI for a repeat milk scan or probe to see if he is aspirating.

The nurse/doctors sent the prescriptions to the pharmacy already so the medicines will be ready when we are. He will be going home on 2 antibiotics through G-tube, one inhaled antibiotic and hyper tonic solution.

Dillon got a bath, had his teeth brushed good and was sitting in his chair for a while this afternoon. Right now he is resting in bed. His heart rate has been below 120 almost the whole day. (Other than when it took 4 sticks to get some blood!) His oxygen has been 97-100 most of the day. Do you know how unusual it is to see 100 on ROOM AIR for Dillon?!?! I really think cleaning his lungs out and the antibiotics are helping him already. I am excited to see if this continues. I am also praying he won't be aspirating when we get the repeat tests!

Thank you again to everyone who has helped, called me, emailed me, sent ecards to the room, made meals, etc. This has been a hard time for the whole family but it is good to see the light at the end of the tunnel.

Why the Platypus?

This blog is the thought process as I learn to care for my children and depend only on God through the special situation He has given to us. I hope it will bring God glory, it is through his strength and grace that I care for my children.

Why the platypus you may ask? When I first tried to think of something in nature that people think is a mistake I thought of the platypus. It is a weird creature that many scientists thought was a prank, they didn't believe it was a real animal. They thought it was a mistake. God made NO mistakes when He created Dillon, He made NO mistakes when He allowed Dillon to have brain damage, and He made NO mistakes in giving us our other three children. Dillon is 5, JayDonn is 4, Truett is almost 2 and Hadassah's was born in September.