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A healthy mind locked inside a frozen body. A cure is near, but we need to keep research funded to perfect it in time for those with FOP. Your role is crucial in preventing one of the world's most debilitating conditions – forever! Hope rests with people like you, people who care. Please become a FOP Friend.

Isla

"My name is Isla, I will be 2 in December and live in Windlesham (Surrey). I am a happy, energetic little girl and love cuddles, splashing in the pool and playing in the park with my friends! But, I have to be careful as even the smallest bump can cause unwanted bone growth".

Our world fell apart when we found out Isla had FOP but thankfully FOP Friends were there for us from the start and we soon learnt that a cure is looking hopeful within Isla's lifetime. The donations you make will be used to make this hope a reality.

All money raised by FOP Friends goes directly to supporting the research to find treatments and a cure. This research will also advance treatments for many other conditions such as osteoporosis, heart disease, spinal cord injury and childhood brain cancer.