Imagine you've been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do?
My name is Avery Lynn Canahuati, I'm almost 5 months old, and this has become my reality. But before I die, there's a few things I'd like to accomplish...this is my bucket list and my story.
SHARE IT & HELP ME TELL THE WORLD ABOUT SMA!

Saturday, August 2, 2014

Please share Avery's story by updating your social networks, e-mailing all of your contacts, talking to your friends/co-workers, and definitely tell your Ob/GYN about Avery's story and maybe they'll routinely start offering SMA testing. If we can help save a few of Avery's friends and their mommy, daddy, and loved ones from SMA, then Avery's life, while cut short in time, will continue to be fulfilling in stature.

We're not sure why August was selected as Spinal Muscular Atrophy (SMA) Awareness Month, but we are certainly happy SMA has it's own awareness month! With that said, SMA is a 24/7/365 disease and it does not take off the other 11-months of the year. So while this is officially SMA Awareness Month, we'd encourage you to continuously educate yourself and others about:

Don't forget to share Avery's story and continue to follow the stories of children & families currently battling SMA! The more people aware of SMA the less likely a family will receive a diagnosis of SMA and the more likely there will one day be a cure for children currently battling SMA!