The story of our miracle girl, Parker Elizabeth and a little thing called Hydrocephalus…

A Plan?

I am scared to type that Parker has not had a pain episode since October 1st. I’m afraid if I type those words she will have another one.

We had an appointment with our Neurosurgeon last Tuesday. I expected by that time she would have had several episodes because that is what happened last Spring. But, that wasn’t the case. So, the plan isn’t really a plan. We are scheduled for a MRI on 12/18. He wants to see how her ventricles have reacted to the new valve that was placed in May. If she becomes symptomatic, we will revisit the CVR surgery or possibly another revision. I almost feel like we are on a hamster wheel.

So, the plan is a MRI. It doesn’t really feel like a plan, but I’m okay with that.