Thursday, June 25, 2009

A week ago Pablo was hustling. He was in Lego camp four hours a day, then playing with Eli after everyone else left. We were riding bikes and running around and laughing a lot. He was playing with his growing collection of toy guns. He was singing inspired songs, making up the words off the top of his dome. He was recounting stories that he'd learned from Polly, from Jo Ann, from Grady, from me. He loves to pass along a story. No matter what the narrative is, Pablo tells it with his face pulled into a smile, hands punctuating in the air - a real raconteur.

All of this is wonderful and makes up the very kind of life we want for Pablo. And it's why it's impossibly sad and gut-wrenching seeing him lying in bed right now, with an oxygen tube wrapped round his head feeding air into his nose, doped up on Morphine, remarking that it's hard to breathe. Pablo is a person that causes those around him to gasp for air - and only cos he's always running around and having people chase him. Always because he's on a quest for fun. To see his breathing impaired - that doesn't compute. But here we are. There he is.

In terms of a medical update, there's not a lot to say. A number of things are up in the air right now, and we're going to relay only concrete information. I am happy to say that P received platelets and red blood today. And he's sleeping peacefully after a sleepless night.

Grady just arrived. When P wakes up and sees him, he's gonna be happy. He loves his big brother more than just about anything. And we love that.

just wanted to let you all know my love and prayers are with you always everyday and everynight. I believe in positive energy and I know a lot of people including all of us are praying and sending love.

sending you light, hope and positive energy. May the light shine through room 435 tomorrow morning and bring good news, new options, and a smiling Pablo when you wake. I am visualizing the fluid evaporating and the tumors shrinking. I am visualizing Pablo laughing, telling stories, breathing strong, and asking for some dairyless ice cream. Keep up the faith. I know you will..