Sorry for the late answer. I have been living with the pump for almost 3 years. Last 2 years were happy, healthy years. I was able to run with my kids and friends, I did yoga and pilates. With time I felt the pump less and less. I feel it during harder pilates exwrcises or yoga poses but it is painl...

Hi,I git diagnosed in June 2015 with 10+mets to the liver. AS JulieJ I seeked help in MSKCC and received HAI pump treatment. I am 2 years NED and off chemo.I agree Julie's post. The genetic testing was the first thing I did even before coming to MSKCC.Good luck!

I will try to answer a few of your questions. I signed consent form for palliative treat almost 3 years ago and i am still doing good. You must have had a biopsy during your diagnostic colonoscopy. The pathology report of the tissue should provide the info about mutations, MSI/MSS status. Check what...

I am very sorry. I would take a look at your MSS/MSI status. If you are MSI you may respond very well to immunotherapy. Somebody has already mentioned immunotherapy to you?? I would also look at your pathology report and mutation status. I would treat cancer according it's mutation status if MSS. Ma...

Thank you very much for this message. I will certainly send a letter/email to J&J. Such a bad news for new patients. I have recently had another completely clear scan and good labs. I am 2 years past resection, almost 3 years after diagnosis and my check ups are becoming less frequent. I was giv...

These news hit me hard. I have followed her blog since my diagnosis. I exchanged a few emails. I prayed for her. I saw her from distance in MSKCC in mid January and started to run to meet her. She was being called for labs. I stopped in the middle of the short distance and turn around as I did not k...

I tried to eat the low calories diet during the time our Tom posted much about the Longo approach to chemo. I had rather unpleasant experience. I tried it during my 2 treatments with 5 FU only back in 2016. Overall bad experience. I felt weak. After one of the treatments my oral Herpes virus activat...

Robino, I don't know whether you have ever read TimUK posts. In my opinion he chose the very wise road with his treatment and was doing good when he posted last time. I strongly believe that we should take more modern approach to the cancer and treat it according mutation status. Tim chose the best ...