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Please note that the sign up process is moderated, so once you have provided email verification it may be a day or two before your account is validated by staff, although we will get to it as soon as we can.

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It is with a heavy heart that we tell you all that our dear staff member Tonibunny, who was with SSo from the start and was a good friend to many here, passed away 26th February.

She was a wonderful friend to many members of the site. She readily shared all her knowledge and experience of scoliosis and was always willing to help and encourage anyone who reached out to her. When she wasn't sharing her experience of scoliosis, she shared her love of books, art, and music. She had a love of learning and life that was infectious.

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I met Titch on a Flatback group on Yahoo/msn groups quite a few years ago now, she informed me of her forum as i had other issues aswell as flatback and I've been here ever since, I think its been since about 2004ish
I'd like to add thankyou Titch you pretty much saved my life! x

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I think through wikipedia... but it was so long ago (I was 10 or 11!) that it's kind of hard to remember...
And there was a surgey in the middle so I think my memory has been addled somewhat by the variety of different meds...

But I think we were linked through wikipedia

"to read make our speaking english good" - xander harris

not good with maths, generally unqualified, but can play lots of instrument and is sometimes funny

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I actually can't remember! It seems like I joined such a long time ago, but in reality it was less than 2 years ago! Google sounds likely though

I was so ignorant about a lot of things to do with my spine before I found this place - all I had were my medical notes, which didn't make a lot of sense to me, so this forum really did help to 'enlighten' me!

I'm Sally, 31, and I have congenital kyphoscoliosis in association with Spina Bifida, Diastematomyelia and tethered cord. Surgery to detether spinal cord and remove bone spur at Addenbrooke's in 1984 aged 3. Developed 'pes cavus' and weakness in legs, various foot surgeries between '92 and '94. Decompression of spinal cord, hemivertebrectomy and fusion L2-L4 with instrumentation by Mr Crawford and Mr Laing (neurosurgeon) in 1998 aged 17. Had two stage anterior-posterior T10 to pelvis fusion surgery on 27th February 2012 at NNUH by Mr Crawford and Mr Lutchman. Fused well but now curving over top of fusion, so facing fusion extension up to T1. Trying a brace first in order to put off surgery til next year

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Mr Harrison!! That's really wonderful, I knew that a couple of the consultants recommend us but I didn't know that he did too!!

[SIZE="1"]37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.[/SIZE]

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Not sure who posted it, but I saw a link to this forum over at the National Scoliosis Foundation. I was never able to post there because they never confirmed my registration. But I was grateful for the posted link as I did not find this forum in searches.