Milestones since the 32 minutes of anoxia (lack of oxygen)Potty training (for a couple of months)Using switches (toys)BlinkingSmilingSwallowingPulling self upCan sign "more" and "all done" in her own wayKnowing her surroundings and people in her lifeEye trackingkicking/pushing away with hands if upset

Bucket List AchievementsWas in the OceanRode a ponySaw FireworksTraveled the country in an RVRode on an amusement park ride (two)Was in a paradeGave something of herself, freelyReceived mailSent mailSat on Santa's lapWent to a pumpkin farmDancedHas a personally decorated bedroom Has been tickledFell asleep in Mommy's and Daddy's armsPetted an animal (goat, dog, and ferret)Dressed up for Halloween (Dorthy from Wizard of Oz, Wonderwoman, and ) Smelled a flowerGot raspberries on her tummyFelt rain on her faceLaid on Mommy's (and Daddy's) chestCaught bubblesPlayed dress up/dressed upWalked in God's beautyWatched fish swimSwung on a swingSaw flowers bloomWatched a paradePlayed in a poolWent to a sporting event (was a part of the crowd)Hung decorations up on a Christmas treeWent to a drive in theaterWatched a bonfireHad a birthday party Colored in a coloring bookFound Easter eggsWent to a zooWished upon a starWas kissed on the foreheadLaughedHeld handsMade a snow angelFeels unconditional loveSaw a rainbowWent to a car showHeard a live bandTraveled outside her homestateFloated in a lazy riverFinger paintedSat inside a petting Zoo (and a goat ate her hearing aid!)

Interesting Facts about Kayli1. Kayli helped set up a new policy at her school, making it possible for kiddos with trachs to swim in the school's pool! She was the first kiddo with a trach to ever go in her school's pool!

2. Kayli donated 14" of her hair in December of 2012. She was the youngest person to ever donate to Wigs for Kids, and with the most amount of hair!

3. Kayli is a very spiritual girl, and has been known to leave her body and visit others.

4. Kayli has been granted 8 miracles of life! The miracles include surviving: Full Trisomy 18, 32 minutes of anoxia, 7 weeks of Endocarditis and Sepsis without antibiotics, a perforated bowel, a surgically misplaced Gtube for 3 weeks, a pinhole sized airway for 3 weeks (resulted in a tracheostomy), a heart med overdose (10X the amount of Clonidine), a Potassium level of 8.2 (range is 3.5-5).

5. Kayli loves to swim, and especially getting her hair wet!

6. Kayli has had 18 surgeries throughout her life, including heart, spine, and abdominal. Her family has had more than 60 surgeries, and Kayli does not yet "hold the record" for the most surgeries in the family.

7. Kayli has met many others with her same "rare" trisomy diagnosis.

8. Kayli goes to school. She LOVES school!

9. Kayli's clothes size is age appropriate, but her shoe size is still only 6-12 months!

10. Kayli is the youngest of 7 (including half siblings).

11. When Kayli was born, she could eat orally, and was fed breast milk for the first 9 months of her life.

12. Kayli's life challenges are directly related to the 32 minutes without oxygen, and have minimal (if anything) to do with Trisomy 18 diagnosis.

13. Kayli's ears were pierced for her first birthday.

14. Kayli has visited 10 states in the USA

15. Kayli wears lipgloss regularly (she has many different flavors to choose from!)

16. Kayli teethed in a typical manner, and she has a full mouth of teeth, but her upper teeth are covered with an overgrowth of gums, caused by a seizure medication. She will be getting her gums lazored back because the gum overgrowth is causing her jaw to grow upwards instead of out.

17. Kayli had a cleft palate, that closed on it's own and she is allergic to the antihistamine, Zantac (both unheard of, but unique to Kayli)!

18. Kayli does not like the sun, and sneezes every time her eyes are exposed to the sun.

19. Kayli does not like the cracks in the side walk, nor strolling on bricks or any gaps in solid ground.

20. Kayli collects piggy banks and hair bows.

21. Kayli has photo frames and earrings from each monumental place she has visited. The photo frames are placed on shelves in her room, as reminders of family times well spent.

Kayli's Story

Kayli was born with Trisomy 18, otherwise known as Edwards Syndrome. Kayli has been granted 8 miracles of life! The miracles include surviving: Full Trisomy 18, 32 minutes of anoxia, 7 weeks of Endocarditis and Sepsis without antibiotics, a perforated bowel, a surgically misplaced Gtube for 3 weeks, a pinhole sized airway for 3 weeks (resulted in a tracheostomy), a heart med overdose (10X the amount of Clonidine), a Potassium level of 8.2 (range is 3.5-5).
Kayli has 3 older brothers, each with their own, rare disabilities.
Claim'er: Although Kayli's pictures, videos, and information are public, it shall never be used against her. It is not permitted to use Kayli's information, videos, nor pictures, for sale or profit in any way. Kayli's Krusade is to openly share hope, knowledge, resources, acceptance, faith, and to spread God's testimony of Love. You are welcome to share her story with others, as long as the intent is for her purposes, and done with respect for Kayli, our child of God. ♥