Tuesday, July 16, 2013

Deep Breath...

After a very long and trying day, we are back in the comforts of our "home away from home", another prayer answered! When we learned from Dr. O that the stent came out with relative ease you could almost see the huge weight of relief come off of our chests. We took a deep breath, and have been breathing just a little easier ever since.

We have learned to plan for the worse and hope for the best, its just they way things happen in our life. Our preparations paid off once again, bumps happened along the road all day today, but miracle of all miracles we were able to keep Lucy on med schedule including arriving back at DuPont in time to change TPN at 8:30pm! Those of you who have had the pleasure of assisting with Lucy's care have to be amazed by this cause I know I am :).

Lucy's pain has increased as the night has gone on, we are going to do our best to try and stay on top of it throughout the night. Labs are ordered for the morning, we are going to be monitoring her closely for pancreatitis.

I really want to shout out to all of you who have helped our family during these oh so many trying times and say a very heart felt thank you! Thank you for loving and caring for our family like you do, and for taking care of our children like they are your own. Thank you for all of the meals and groceries, and for offering to do what seems like the smallest gestures that make such a HUGE difference in our everyday life. We thank you for your love and support, thoughts and prayers! We could NEVER do this alone and we are so very very thankful that we do not have to.

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FOR THE LOVE OF LUCY RESEARCH FUND

In loving memory of Lucy Grace Marlett, the bravest five-year-old girl we know. Please help us to find a cure for Mitochondrial Disease by clicking on the image and donating to the "For the Love of Lucy Research Fund" established by her family and the UMDF. Thank you for your love and support!

ENERGY FOR LIFE WALKATHON

UNITED MITOCHONDRIAL DISEASE FOUNDATION

We are All the Marletts, a family of six trying to live life to its fullest! My husband and I fell in love at a young age and dreamed of being married, having a family, and growing old together… Even though our life is what we hoped it would be, we could never have imagined what GOD had in store for us along the way. Being parents to four remarkable kiddos has proven to be MORE in every way! When our youngest was born, although we didn’t know it right away, we were given the privilege and challenge of raising a “special child”, a medically complex child. Since starting this blog, Lucy has been diagnosed with Mitochondrial Disease, a progressive degenerative disease of energy metabolism. Even though this is a blog about our life as a family, I write often about Lucy’s medical issues. If you care to read about the trials and tribulations of raising four children, the joys and hardships of our family life, the emotional roller coaster ride that raising a medically complex child puts one on, and the love that pours from my heart onto the pages of this blog then…welcome!