Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Jake was diagnosed with Spinal Muscular Atrophy type 3 at the age of 4. SMA is a genetic, degenerative neuro-muscular disease which has been passed to Jake from myself and Dave. Obviously we did not know we were both carriers of this defective gene so it was devastating when Jake was diagnosed as the guilt we felt was unbearable. We still live with this on a daily basis but we try to stay strong as his condition worsens.

Since the age of 4 he has had a life of hospital appointments, physiotherapy, hydrotherapy, orthotics, consultants, occupational therapy ... you name it, he's had the appointment! He's gone through life with a huge smile, an infectious laugh and lots of positivity BUT.....

Over the last six months his condition has deteriorated quite rapidly and he is now unable to walk unaided so uses his wheelchair full time. As his muscles weaken all over his body, his arms are finding it harder to propel himself in his manual wheelchair. He REFUSES to go into an electric wheelchair as this, he thinks, will make him look" too disabled".

We have done our research and the wheels that we need for his K-series wheelchair are battery powered which will help him to get around without too much strain on his upper arms, so conserving his precious energy for the things he likes to do.

One of my incredible friends has already raised a lot of money towards his wheels by doing a gruellng four day cycle ride across the Alps. (A HUGE thank you Julian Cook, you truly are a very generous man).

There is a newly released treatment out there for SMA sufferers called SPINRAZA. This is currently NOT available to Jake because the NHS can't afford it!! This has been devastating news for all of us as we watch him weaken so any financial help towards his wheels or setting us on the road to paying for SPINRAZA ourselves (along with donations) would be INCREDIBLE.

I know so many of our friends have asked about donating to help Boo so here is your chance ! THANK YOU SOOO MUCH xxx

LAST THING: We are having a "Boo's Wheels" fundraiser on FRIDAY 10TH NOVEMBER at The Thunderbolt, Bath Road in Bristol where Dave will be headlining with his band, THE BLUE BUS and my gorgeous friend Tegan will be supporting with her band FURLINED. We will also have some amazing teenage performers. It;ll be a fun night so please do come along and support Boo. Tickets are £10.00 and if you click on the 'donate' button and leave a message along with your email address, I will email through your ticket. THANK YOU THANK YOU THANK YOU THANK YOU XXX

We're also after RAFFLE PRIZES so please get in touch if you'd like to donate a prize... Again, THANK YOU xxx

Thank you for reading and helping xxx

Updates

6

2 months ago

Kate Ogborne

2 months ago

Share this update to help us raise more

4 months ago

Kate Ogborne

4 months ago

We've reached target and beyond !! Thank you so very much to EVERYONE who has supported us. We are so humbled ... Thank you xxxxc

Share this update to help us raise more

4 months ago

Kate Ogborne

4 months ago

Wow wow wow and thank you ALL so very much. We're nearly there !!! So looking forward to Friday 10th at The Thunderbolt. It'll be a great night for sure .. thanks again xxx

Share this update to help us raise more

7 months ago

Kate Ogborne started crowdfunding

Leave a message of support

Supporters

137

Anonymous

Nov 21, 2017

Sorry I missed this before. Glad the fundraiser went well :-)

Paul Dollin

Nov 18, 2017

Best Wishes from the Dollins and Henry and Rosie

£50.00

Sharon Grainger

Nov 17, 2017

Sorry it’s so late in the day x

Kate Rooke

Nov 17, 2017

From an angle friend ,isaac

£10.00

Crystal Mohr

Nov 17, 2017

From Oscar Mohr 😀

£10.00

Jane Nicholls

Nov 17, 2017

Happy to support such a great cause :)

£10.00

Anonymous

Nov 16, 2017

Hi Jake, this is from Anango's friend Mathieu.Hope this will help you and ease your life!Best wishes.