Please can I give a gentle reminder to members about guideline *4a when replying to this post, thanks guys:

*4a.Health Professionals should not be referred to by name in a negative manner, as per the HealthUnlocked Community Guidelines. HU is not a form to create negative feedback about identifiable individuals.

I am sorry I cannot help you with these names. I know you have been seeking information about Specialists in your quest for help with your condition for several months now.

I suggest you contact the hospitals where they run their clinics and ask for advice. Many hospitals publish reviews of their clinics which could help you.

I think the only way forward is to write a personal letter to each and find out if this is within their remit and if they will be willing to treat you. Then you can go to your GP and ask for a referral.