Okay, Beverly asked me to post my scan results today. I must say I am dumbfounded. Not only did the scan show that the adrenal anomally that the doctor had been concerned about was nothing of import, but showed there was no evidence of active cancer anywhere. The way he put it is that it's there, but is dormant. When I asked him if this meant I had an improved prognosis, he said that it could come back in 5 years, 10 years, even 20 years. 6 months ago, I was looking at 5 years on the outside. This has come about with no surgery and one 12 treatment round of Folfox....and a lot of prayer. I have to have PET scans every 3 months and keep my port with port flushes every 6 weeks, but that's it. Has anyone else had this experience or know of anyone who has?

THANK YOU FOR POSTING!!! It was lovely to chat with you the other day. I simply couldn't be happier for you, and that you came back to the board as well. This is the most wonderful news! YIPPEEEE! Please stick around and play with us if you feel like it If not, I'll see you on FB.

Many hugs to you, thinking of you and your family, AND your wonderful weekend coming up---have a perfect time!

bluewillow wrote:The way he put it is that it's there, but is dormant. When I asked him if this meant I had an improved prognosis, he said that it could come back in 5 years, 10 years, even 20 years. 6 months ago, I was looking at 5 years on the outside. This has come about with no surgery and one 12 treatment round of Folfox.

I've run across one or two people who've had what is called "a complete response" to chemo. It's very, very rare...but sometimes the drugs do their job very well.

"it's there, but is dormant".... isn't it possible that it's simply dead? I hate this looming threat!

I have a friend with complete response after Folfox/Avastin. There was no evidence of his liver met at the resection. Opened him up and found nothing, so only colon resect done. Three yrs later, the liver met reappeared. Liver resection done- no follow up chemo. Along the way, there was a lung met (before the liver met reappeared), had surgery, and again, no chemo. He's well and approaching the four yr mark.Incredible treatment response. LOVE IT! Congratulations!Do keep in touch.