I suggest a campaign about ...

Funding for bio-medical research into M.E. and not the psychiatric lobby or big pharma.

The definition of M.E. as a neurological illness as classified by the World Health Organisation is widely acknowledged. However, why is the funding in the UK given to the psychiatric lobby and NOT into clinical or bio-medical research? Is it because this area is monopolised by those with particular vested ?interests

I just want my life back. Not a lot to ask is it? An unbroken night of refreshing sleep.... a day without unremiting disabling pain...... a visit to my granddaughter.
My biggest dream? The ability to simply take a stroll in the countryside. For me, that's a BIG deal!
PATIENTS ARE GIVEN NOTHING... NO RESEARCH.... NO CURE.... NO HOPE!

I was most interested to read Ruth's message re the care of neurological illnesses in the USA. It is appalling that a country like the UK, that claims to respect peoples human rights, can systematically prejudice a minority of sick people on the grounds of a theory that has never been scientifically proven.

M.E needs to be taken as seriously as the illness itself... it is also about time the UK took it more seriously and have funding in place. CDC now see this as a real illness, come on UK wake up and do something. M.E in ALL countries needs to have more research and funding, it is ruining so many peoples lives, it could be you or your loved one next! COME ON!

Although I am from the United States where M.E. is largely treated as the neurological disease as defined by the W.H.O., I am consistently appalled by the lack of medical treatment and humiliation shared by my "brothers and sisters" in the UK.

Certainly there is a faction in the UK being served by this shameful and shaming behavior. WHO, I ask? Not the World Health Organization. Not the international board of doctors who have agreed on an international definition.

The UK M.E. population is being held hostage by the psychiatric lobby in its own country, where they pay for medical care.

WHY?

At some point history books will tell of this atrocity as one of the cruelest times in medical history. Much like when MS was considered "hysteria."

I suffered at the hands of psychiatrists for this illness. They even said that it was my marriage which was at fault. Eventually my marriage broke up under the strain. I was made to feel like a freak and told that I didn't want to get better and that's why I was still ill. What we needed was support and understanding and now all I need, as do all the other people with M.E, is clinical or bio medical research to find a cure for this dreadful illness.

Dear Andrew Lansley, if you want to save some money for the health service then cut the funding to psychiatric treatment for all neurological illness. Then if there is any money left after you have scrapped inheritance taxes, can you please fund bio-medical research?

WE need bio-medical research! Time has stood still for hundreds of thousands of patients. WE cannot "talk" or "think" ourselves better and yet every penny of £M's has been allocated to the ruling psychiatric cadre. When will somebody, anybody, listen?