11 comments:

I'm so glad you stopped by Cheap Wine and Cookies because I'm super excited to dig into your blog. I'm also excited because I have been going up and down and up and down about possibly moving to Portland when I get out of the Marines.

I saw a link to your blog on Inspire.com and I just have to thank you for writing it with such honesty. I am the mother of a surviving 26 week twin who is about to turn 2 and I have never seen a blog that is so honest about what it's like to have a child with special needs. Thank you for writing it and for making me feel like someone else out there gets that it is not always sunshine and roses!!!

I think what you've captured here is a more dramatic version what everyone with two or more kids eventually discovers. The child makes the parent. And if those kids aren't twins, you have a period of thinking you know what kind of parent you are, until the second one comes and upends the apple cart.

Anonymous: Wow, thanks so much. I try to be as honest as I can, both in life and in writing. I worry that it will turn off some folks who are looking for the bright side, but I feel like people like us need a space where they can talk about the clouds, too! :)

I think you're right, Steph. It seems like many aspects of SPN parenting is just more intense versions of regular parenting.

I love this post! Matt is an only child, but we never wanted thought we would be the kind of parents we are with him. We have tons of nieces and nephews and we were used to kids running around, getting dirty and scraping their knees. We were in no way prepared for all of the specialists, diets and medications. I always wonder what our lives would have been like if we could have been the other kind of parents.

Books by Shasta Kearns Moore!

Prayers, thoughts, well-wishes, intentions, good vibes, whatever

Here are a few key things on our cosmic wishlist for Malachi's recovery. I don't care who you address your requests to, but I do believe you can help us right now by taking a moment to ask your divinity for these things:

» The patience and stamina to explore his body and what it can do.

» The ability to swallow food and liquids normally.

» Stability through his trunk, including strengthening the flexor muscles.