Transitioning from a Regular Life to one with an Invisible Illness

Monthly Archives: May 2014

I have felt and have been invisible lately and my invisible illness has really prevented me from participating in life and writing on my blog. Today is ME/FM/MCS Awareness Day and I felt it was important that I write something on this topic. Unless people become aware of our illness and our suffering we all will remain invisible. My pain is invisible to others, but very real to me. To others it may appear that I am healthy, as I do not use a cane, walker or wheelchair, but I am not healthy. I am limited to 4oo steps at a time and then I need to rest.

So while I may seem fine to the outside world, I suffer in silence and unless our suffering is made known, we will always suffer in silence and in the comfort of our own home with our close loved ones.

They are helpless too, as there is very little that anyone can do for us. They can drop us off in front of our destination, to save us the extra 25 steps, or they can pick up some grocery items for us to save us from using our precious energy commodity up on daily tasks, but they can’t cure us.

Understanding and compassion from loved ones is very important, but understanding and compassion from the Medical Community is what we need and unless that community is continually made aware of what we deal with on a day to day basis, nothing will change.

So as I once again sit by my window on this beautiful spring day, while the rest of the world is going about their everyday life. I hope that a year from now some headway will be made and I will be able to be on the other side of my window.

I have to keep remembering that there is Life Beyond my Window and I will be able to participate in it again!!