Social media and the rare disease community

Social media has opened up an infinite amount of possibilities for patients and patient advocates, creating a large online community. This powerful platform has enabled rare disease stakeholders to raise awareness of diseases, fight for treatment, impact legislation, helped find participants for clinical trials, speed up market access and much more!

[pullquote type=”right”]Social media is extremely powerful in orphan drugs and rare disease[/pullquote] Back in 2013, in the run-up to the World Orphan Drug Congress USA 2014 we researched the rare disease social media landscape and profiled 50 social media influencers working within the industry. Considering the impact that social media has had on raising awareness of rare diseases, we decided to take another look at the social media landscape. This eBook takes a look at 18 additional social media influencers in orphan drugs and rare diseases. The social media influencers in this report were selected based on activity levels, engagement, and community reach. The influencers include representatives from patient advocacy groups, industry and government, from North America, Europe, Asia and beyond.

Want to know who made the list?Download the report now to identify some new, valuable sources of industry news and community engagement.