Finding a Diagnosis

Resources for Finding a Diagnosis

Some patients wait years for a definitive diagnosis. Using a unique combination of scientific and medical expertise and resources at the National Institutes of Health (NIH), the Undiagnosed Diseases Program (UDP), a clinical site of the Undiagnosed Diseases Network, pursues two goals:

To provide answers to patients with mysterious conditions that have long eluded diagnosis

Trying to find an underlying diagnosis for many conditions can be a very long and frustrating experience. With more rare conditions, a diagnosis can often take many years. Although this can be incredibly difficult, the NIH has put together some helpful tips to help you navigate the process.

In Need Of Diagnosis, Inc. (INOD) advocates for increased accuracy and timeliness of diagnoses and is a resource center for those who suffer with illnesses that have eluded diagnosis.

Undiagnosed Documentary

Undiagnosed: Medical Refugees is the untold story of the millions of people just like you whose lives have been devastated due to unknown or unsolved illnesses. What understanding more about the predicament of children and adults in this difficult situation could offer to the future of medicine is astounding, yet this population remains virtually ignored. These people exist as medical refugees in a modern health care system, living in a constant state of unknown.

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