maandag 2 januari 2012

Thanks for all the birthday cards, txt mssgs, emails and FaceBook-comments! As we want our big big fellow (Liko is our little big fellow) to be near us as close as possible we are happy he's here as part of our world.

Today is a sadder day: for us it marks the 'birthday' of our biggest sorrow: we can't help but re-living it in our minds.
Today two years ago we raced Kalle to the hospital in the early morning, where he had to stay because he was too sick.
After that day, things only got worse.

Weeks later we knew the meningitis caused Kalle a huge brain damage: a life-long burden he -and we- has to wear.

Months later we couldn't deny Kalle got another true enemy in epilepsy. And he even got diagnosed with West Syndrome.

Years later -now- we realize that our little fighter will have a life with uncountable enemies-from-within:
it's almost unexplainable how deep a brain damage this size cuts in all parts of your functions. Therefore the future is such a question mark.

Only in two years, Kalle's life included 5 stays in 2 different hospitals, series of drives to the ER of Sophia Children's Hospital, loads of different meds, different kinds of therapy, way too much different kind of seizures, sadly enough increasing in length and heavyness.

We know we do everything we can. People around us try to do everything they can, which we surely appreciate. But it's simply not enough.

Kalle isn't getting any better. Most of the time he's not happy with how he has to live.
And that is so hard to celebrate.

We wish our sweet Kalle a year where the seemingly impossible happens.
We wish our Kalle a smile on his face...

Here's some snapshots from last month:

Asleep in the wonderful Wolff-van Beurden-mansion in Berlin-Karshorst with Mausi

Daddy's got a new app...

Kalle and his niece Jonne on Twitter

Just like my Dutch grandmother,
Marianne loves me so much!

With daddy and Liko in a café at
Helmholdtsplatz, Prenzl' Berg on a rainy day