4 and a half year old has frequent PVCs

Hi, my 4.5 year old boy is currently wearing the 24 he monitor after diagnosis of frequent PVCs, has anyone any experience of this? We haven’t had an echocardiogram yet as the waiting list is quite long. We are so worried about him and I guess we are looking for positive stories out there. Thanks x

Comments (8)

Hi Mama. I’m sorry that you are going through this. Are you near a children’s hospital? Have you met with a cardiologist yet? Have they mentioned anything about the electrical system of the heart? How long did they say the waiting list is? Days, weeks, months? My daughter has an electrical issue with her heart called PJRT.

Hi Mama. I’m sorry that you are going through this. Are you near a childr...

Posted
09/04/2018

Hi Mama. I’m sorry that you are going through this. Are you near a children’s hospital? Have you met with a cardiologist yet? Have they mentioned anything about the electrical system of the heart? How long did they say the waiting list is? Days, weeks, months? My daughter has an electrical issue with her heart called PJRT.

Hi Paige we are about 50 minutes away from the hospital, my lo has the 24 hr monitor on today so hoping to hear some results and advice within the week. What is pjrt? Hope your little girl is ok xx

Hi Paige we are about 50 minutes away from the hospital, my lo has the 24 hr...

Posted
09/05/2018

Hi Paige we are about 50 minutes away from the hospital, my lo has the 24 hr monitor on today so hoping to hear some results and advice within the week. What is pjrt? Hope your little girl is ok xx

PJRT has to do with the electrical system of the heart. She has an extra electrical pathway in her heart that causes her heart to beat over 250 BPM. It is is like SVT but hers can’t not be stopped by vaguel maneuvers or certain types of medication. Basically it’s at that high heart and it’s hard to stop.

My friends son was having PVC’s when he was younger. I guess it can be quite common with kids when growing.

PJRT has to do with the electrical system of the heart. She has an extra ele...

Posted
09/06/2018

PJRT has to do with the electrical system of the heart. She has an extra electrical pathway in her heart that causes her heart to beat over 250 BPM. It is is like SVT but hers can’t not be stopped by vaguel maneuvers or certain types of medication. Basically it’s at that high heart and it’s hard to stop.

My friends son was having PVC’s when he was younger. I guess it can be quite common with kids when growing.

What is the course of action for your little girl? Being a mum is so hard especially when the littles aren’t well! Did u friends son grow out of the PVCs? Xx

My daughter has critical heart defects, but also has a rhythm issue called SVT. She has frequent PVCs. Her heart rate also can hit 350bpm though. Some people just have frequent PVCs though, even with an otherwise healthy heart. PVCs are usually benign and not much to worry about, unless the frequency is deemed tol many. I know of people who have 10,000 or more of them a day and are totally fine. It is hard to say what is going on though until everything is ruled out, including structural issues (cue the echo). I'm assuming you are from the UK if you are on a waiting list. Hopefully it isn't too long.

My daughter has critical heart defects, but also has a rhythm issue called SV...

Posted
09/07/2018

My daughter has critical heart defects, but also has a rhythm issue called SVT. She has frequent PVCs. Her heart rate also can hit 350bpm though. Some people just have frequent PVCs though, even with an otherwise healthy heart. PVCs are usually benign and not much to worry about, unless the frequency is deemed tol many. I know of people who have 10,000 or more of them a day and are totally fine. It is hard to say what is going on though until everything is ruled out, including structural issues (cue the echo). I'm assuming you are from the UK if you are on a waiting list. Hopefully it isn't too long.

She is on 2ml of propranolol (inderal) 3xs a day and has been since coming home from the hospital. She had heart surgery at 11 days old for her defects and was put on propranolol that evening for her arrythmia. She did not have episodes of her arrythmia after surgery, but the medicine she was on to control them before surgery is considered a toxin (it is effective, but has to be monitored carefully, otherwise it can become toxic in the body). Propranolol is a much safer alternative and they were able to put her on it after surgery without it counteracting a medicine she was using for life support before surgery. She is about 17.5 months now, so has been on it for about 17 months. She will continue to be on it for a long time, although most doctors like to try to wean kids off of it by 1 or about 1 year after starting it if they are older. She will only be on it for a long time because it also helps control her high blood pressure as well. She will have high blood pressure the rest of her life, so I don't know if or when they will take her off and switch her to something else.

Hi Clare I was just checking in to see how your son is doing? My 5 year old was recently diagnosed with frequent PVCs and it’s been extremely stressful and worrisome. I’ve been going nuts researching for success stories. We’ve seen a couple specialists and he just started Metoprolol (beta blocker) 2 nights ago. I hope your son is doing well!

This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other healthcare professional. Please review the Terms of Use before using this site. Your use of the site indicates your agreement to be bound by the Terms of Use.

This site is published by BabyCenter, L.L.C., which is responsible for its contents as further described and qualified in the Terms of Use.

You are passing a message to a BabyCenter staff member.
For the fastest help on community guidelines violations, please click 'Report this' on the item you wish the staff to review.
For general help please read our Help section or contact us.