Hi all .recently visited endocrinologists and he has agreed I can get B12 injections,my Gp said I didnt need them as my level at 185 was fine and to take 1000 mg capsules. I rang my Gp surgery after the endo wrote to her and was told to come in for injections,I was delighted initially as yeah here was my chance to get better .I went to the nurse and she said I was to get one injection for next four weeks and then to come back on a three monthly rotation.On reading posts here and looking on multiple sites i see that more doses are needed..can someone advice me

11 Replies

I see you have a number of posts here and elsewhere but I cannot see if you have an actual diagnosis relating to B12, Depending on the range used i Ireland I would say that at 185 (after having been taking tablets per previous posts?) is definitely low.

I'm not medically qualified but would be interested to know why your B12 is so low. Are you vegan, vegetarian?

Hi .I have no diagnosis relating to low B12.I am not vegan or vegetarian. How would I get a diagnosis and why would I need it.I just thought if it was low it needed supplementing.Doctors seem very odd around this subject which is unusual as I can get sleeping tablets,pain mediation etc with no problems and these are toxic with tons of side effects.

If you have neurological symptoms then you need alternate days until no further improvement...... If this is the case then the consultant needs to spell this out in a letter so there's no misunderstanding from your nurse or GP.

Have you contacted the PAS (Pernicious Anaemia Society)? Lifetime membership costs £20. They have members from around the world. In some cases they can intervene on behalf of members and can point people to useful information and local support groups.

Thank you so much for your detailed reply.I just have a pain in my brain trying to understand all info and then how to explain to my gp in a way that won't get her back up as I am not a DOCTOR like her.linda

The usual loading doses are six over a fortnight, then you go on to three monthly ones. I can't understand why your doctor isn't following the guidelines?

If you have neurological symptoms, then you should be given an injection every other day until symptoms improve. I have to say my GP didn't follow this one, but I knew nothing about low B12 at the time, and didn't realise I should have pushed for more injections.