About time for me to say Hello

I've been following this board for a little over a week now and all your posts have been helping me so much!! I finally gathered the courage to say hello and introduce myself and tell you a bit about me. Sorry if the message comes out too long.

I am 14 weeks pregnancy and just received the positive result of my CVS test last Friday. This is my first baby and I am 32. And I've been waiting for this baby for a LONG time.

When my NT showed a .39 measure I totally thought it was a fluke and the CVS was gonna come back negative. Needless to say I was devastated when I got the call.

My husband and I know we will not terminate unless there's severe health issues that would cause our baby girl to suffer. Yes, it's a girl. And she seems to be developing just fine but the doctors told us it is still too early to tell for sure.

My DH has been my rock. He allowed himself to be sad and grieve for one day and every since then he has been my rock. He got started on her room, is making financial arrangements so she is always taken care of and has told all of his friends and family.

I have to say that ever since then I've come a long way towards acceptance of the situation. I have been through a roller coaster of emotions and it has not stopped. Some days are good, others not so much. Today it's closer to no so much :-( I still don't understand how this happen and keep looking for things that I can blame on myself. I am terrified of how things are gonna go, how she is gonna grow up, how will people react. Most of all, I don't want my baby girl to suffer one minute of her life. I told my close family and a few friends but I am terrified of telling people and how they will react. I definitely don't want anyone to feel sorry for me.

I don't really have a question, but I just wanted to say a sincere THANK YOU to everyone on this board. Even tough I am not 100% ok yet, I have felt better a little bit everyday by reading your support stories, knowing that I am not alone and that we can still have a normal life.

I guess I just have to take one day at a time. I will keep reading this board everyday as I have been and I appreciate all the words of encouragement I read. Please keep us in our prayers so that our little girl develops healthy and strong.

Comments (8)

Congrats on your daughter and I will keep you and your little girl in my prayers! It has been about 2 wks since i recieved dx of trisomy 21 I was devastated and I still have bad days wondering how my son will be. I am 23 wks and have 5 healthy kids I never thought this would happen to me since I have healthy kids. I did happen and I am trying to take 1 day at a time. Message me anytime and take care of yourself!

welcome to the boad! i'm so glad your hubby is so great. my DH and i were never closer after we got the news...we had to be there for each other like never before.

i know how scary this is. i've known now for almost 5 months. most days i'm totally fine, then i'll have a bad day here and there. for the most part, i just cannot wait to hold my boy. this is our first too. for some reason, being our first, it really felt like the dr's were wrong....the timing was perfect, we tried, we wanted the baby so badly, how could this happen to us....everyone around us had perfect healthy babies etc.

it gets easier as time goes on though, that's for sure.

congrats on your baby girl:)

--

Mommy to Benjamin, April 10/13. Down syndrome, AVSD. Best boy in the world!

Welcome! We have been there and know it can bevsi hard in the beginning. I am so glad your husband is so supportive. I hope you have been able to download our pregnancy book from DownSyndromePregnancy.org. It has a lot of useful information. If you go to the website, look under "resources" to see a relatives booklet, and information about estate planning since your husband is looking down that road.

Hello, welcome, and congratulations. I had a really rough three weeks after my 23 week diagnosis. Oh the thoughts you think and feelings you feel. The best advice I had gotten was from these wonderful ladies. Grieve and don't feel guilty. Boy, it can be dark! I can say now at 33 weeks that I am excited! Really I am. I still have my moments, but they aren't as dark or sad. Take your time and do your best to take care of yourself!

Hi! I just wanted to tell u I have been in Ur situation! This is oursecond baby my boy was healthy as can be.....we have gone through so much latley I found out my baby had ca at week 31.....going for a regular checkup.....and right after visiting all ly family and going to hawaii! We came home so happy and in positive spirits until we found out the news.......it was like I was dreaming I thought to myself......I dont want to do anything but cry.....I know with praying and staying close to the lord he has somehow been helping us heal

Welcome! Glad you introduced yourself and you're here for support. It can be a long road with such an early diagnosis so we are here to help it pass more quickly.

My daughter had partial av canal and we were worried early on about her suffering, but ill tell you, this kid is not of the suffering mind frame. She is bubbly, energetic, and a total riot. Her classmates adore her, and she is looking forward to an all day playdate tomorrow.

Thank you for all your replies ladies. I'm still on the "good days, bad days" phase. Yesterday was hard because I am having such a hard pregnancy with nausea and vomiting that I can't help but get frustrated with having to go through this now while having to go through such adjustments.

Today I feel better. I spoke with two co-workers who I ended up finding out that on e had a brother with DS and the other has worked with lots of DS people because her dad has 4 centers that provide assistance to them, it's his calling as she explained.

Between that and reading the wonderful positive stories on this board I gotta say I feel better. I try to focus on all the amazing stuff I had planned to do with my kids, and just tell myself that I'll still be able to do all that and more with my little girl. I am even thinking of names.

Please know that even if there are medical issues, our kids don't "suffer" -- they are fighters! They love to laugh and snuggle and deserve to be loved and given every shot at life. I know how scary getting this news is, but PLEASE BELIEVE us that the road gets easier, and there are many walking it with you to help support you through it.

Best wishes for you and your family!

--

Mama to Jason (3/1999) and Julia (4/2001) and Jonathan Samuel, who arrived by emergency C-section 7.22.2012! (pre-natal dx of T21)