Rheumatoid Arthritis Support Group

Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...

cushing syndrome

I have been on prednisone 30mg for about 6 mos - a smaller dose before that - every time I have tried to taper I have severe flare up that do not reside unless I up the prednisone. I have been on embril, humira wtht no effect and now actemra. It seems I have develop cushing syndrome - with every possible pred induced side effect except for weight gain. I am experiencing severe muscle atrophy - daily losing abilities - I can no longer get out of most chairs or climb steps without pulling myself with my arms. One day I could get out of a particular chair and the next day I can't. Until 2 weeks ago I was doing 20 situps a day easily - then one day I could not do them at all. SAme with my arms - I can barely start my car or throw a ball.. Now my legs are so stiff I can barely walk. - not like I have been sitting around - I am still working and walk alot. I am scared stiff. I am trying to reduce the pred worried about the pain if the actemra has not had any effect. They tell me it will come back - I feel at this rate by nexxt week I will not be able to walk . Has anyone experienced any of this sorry this is so long Nancy

Hi sorry to hear you are in such pain. I was having many difficulties you are until dr put me on 60 mg prednisone n tapered off to 10 mg n a week. Then my pain was coming back so he up the dose to 20 til I saw my Rheumy. Which dropped my dose to 10 n now 5 mg I'm on MTX pills n been on only 2 weeks n my pain slowly coming back but not near as severe. Are you in a lot of pain? The pain was what caused my inabilities n now with less pain I move better not 100% but better. I hope you get to feeling netter soon. Ann

A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...

theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??

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