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On November 10th 2006 our son Luca was born with a lethal form of skeletal dysplasia called short rib polydactyl syndrome. As a result he died an hour and a half after his birth in our arms. Shortly after this we setup The Luca John foundation, a New Jersey based 501c(3) charity. When Luca was diagnosed we looked to find a cure, a way, an option for his survival and we found none.