i've not been on here for a week, I know not why, I'm still off sick etc. but seem to run out of time. So... jusst going to say good luck with the rituximab. I hope it works for you but come off the steroids slowly.

I'm back on Humira weekly to try and settle the RA again, the Rheumy wants to hold off using another drug as we don't have much choice.lol as if I hadn't realised the shortage of cures.

So take a magazine to flick through, when I had my blood trans I was sat next to a girl having her 2nd RTX it's a slow process. do you still have the steroid and antihistamine before. As your taking 40mg pred. you'll be bouncing like Tigger.

Good luck gentle hugs.

xTriciax

5 years agoHidden

Hi Tricia,

I know how you feel, I am back at work, but even before I was back at work, I was struggling to find time to be on here, no idea why?

Yeah I still get the antihistamine and steriods before, to be totally honest since RA, even with 80mg doses off daily steriods and the injections off it Ive never been full off beans, fatigue is one off the worst parts of RA for me

So would love to be feeling like tigger tomorrow lol!!

My GP couldnt beleive how badly swollen my hands and knees are at the moment considering the ammount off pred Im taking, but really didnt want to up it anymore as its almost here now, and even though I know the rituxmab wont work straight away Im really hoping the steriods I get on the day help out with the swellings, pain n stiffness thats been worse past month or so.

Fingers crossed.

I

5 years agoHidden

I will update Tuesday (hopefully) and let you all know how tomorrows infusion goes.