Moin is now the only person in the world with the most severe type of EB and his body is scarred and covered in wounds that will never heal.

Moin described living with EB:

“You can imagine cutting yourself or burning yourself – now just think for a second how much it would sting,” Moin said. “That’s pretty much how I feel everywhere. I go to sleep at night hoping to not wake up the next day, so I do not have to go through this routine.”