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I have lived here since 2004 and this is the 2nd or 3rd time it has happened. I don’t know why. There were other cars on the street as well and one time they threw glass bottles under the car and my old (as in very old age) neighbor helped me pick up the glass and had called to let me know before I came out and drove away on top of the glass. I couldn’t see them from my house.

There were some fancy, expensive cars on the road with mine, but it was me they aimed at.

My pain is getting worse and it will be several weeks to over a month until I can be rescheduled since I had gotten sick before the last procedure. I had a taste of no pain for a while, but now it is back. I lie down for quite a while when I can although that does tend to make me stiff.

My friend and I have switched our brunch day to Sundays rather than Saturdays. Less crowded and better vibes. We were getting aggravated on Saturdays.

Still waiting for the bankruptcy to go forward. I am very anxious. Working on not spending money and wasting gas if I don’t have to go anywhere. Working on setting up a budget as well.

I find the percocets help with the Degenerative Disk Disease, but not so much with the Fibromyalgia or regular arthritis. I use Meloxicam (NSAID) for the arthritis. When I have to stop it 5 days before my epidurals (steroid injections) the pain intensifies and the percocets hardly help at that point.

I tried all but the Lyrica. They either didn’t work or I had terrible side effects. I no longer use anything for my Fibromyalgia and that includes the narcotics. It doesn’t work on that pain just on my degenerative disk disease.

I have separate medications for my arthritis too and narcotics don’t work on my arthritis, I use Meloxicam for that.

Like this:

Pain is weird. I was pain-free for a few days and now it is back, but on the other side of my body. I can’t figure it out. I was so relieved there for a few days and boom, just like that, it is back again.

I can’t figure out if too much movement is the cause, not enough is the cause or that there is no specific reasoning behind it,

I have spent the last few days calling the 2 doctors offices trying to get an appointment for the required EKG. I finally got one today at the very last minute before the procedure. Well slight exaggeration there. The procedure is Tuesday, but no time yet and so need Monday to wait for the time. The EKG is set for the last appointment on Friday afternoon. The day they close early.

I will plan on leaving the house early just in case of problems and just wait in the parking lot for awhile and then in the waiting room. I can’t take any issues such as road construction, detours and such. I was hoping to not have to have it. I really felt better than I had for over the last 7 years, but now it is back.

I just made a payment plan for the MRI’s I had and had to sign a paper so luckily my dad agreed to drive it to the post office for me. I had eased off a little on the pain pills and perhaps that had something to do with it.

I am sitting here in pain. Lying down was feeling better. May be up and down all night till bedtime. I have also had bad stomach pains the last couple of days. Not sure which hurts worse.

I had a major drop today and felt like I was going to pass out. Glucose tablets weren’t working and I felt worse so I actually ate some carbs which is not recommended by the group I am in.

Now it is 3 AM and my sugar is 233 so I took some insulin and some low carb food to attempt to bring it down some without going too far. It is a nasty merry-go-round sometimes. The endocrinologist doesn’t want me to go below 100 to 170 which is simply too high for a diabetic. It leads to more meds and body damage that you hear about. If you talk to long time diabetics they know that the recommended amounts are too high and cause damage. However, one of the possible side effects with keeping our numbers in check is lows. I was doing really good there for a few weeks now I have an occasional low which usually isn’t too bad, but this 50 was stubborn and refusing to come up at first and then even though I was at 84 finally I still felt like passing out so I had a couple of mini cookies. Eventually it did come up and is now 233. So totally the wrong way and out of control tonight.

I hate playing this game. It is dangerous and we are subjected to damage such as eye loss, diabetic neuropathy, amputation and our body organs shutting down from high sugars. The trick is keeping them down without going too low. Epic fail tonight.

Add to that the pain I am in. I don’t understand how you can take a higher dose of pain meds and still feel worse than you did on the lower dose. Plus still trying to get my arthritis meds refilled. I think that is part of it. Then of course, there is the lovely Fibromyalgia. It is flaring big time right now.

I am back to wanting to cry again the pain is so intense, my diabetes is already out of control and I haven’t had the steroids yet which are going to raise them super high and nothing I can do about that because those injections are necessary. I refuse to let this diabetes beat me. Diabetics so often die young because of uncontrolled blood sugars, but my doctor wants me to keep my numbers higher to avoid the lows, but if I do that I risk other problems

Oh and I got my EOB on my prescriptions and my fast acting Novolog taken with meals is over $2000 for 3 months and the slow acting is almost $500 just for one month so $1500 for 3 months. The needles are over $152 for 90 days and the strips are another high number which I have forgotten. If I didn’t have extra help from the state I couldn’t even take them or any meds, Currently they aren’t charging me a copay for the meds at all thank God!

Hopefully my therapist and I will be working on positivity. I need it. Anything at all happens and I immediately go to the negative side. Can’t see the positive til maybe later if things work out which thankfully they usually do.

Part of the problem is that I ran out of my arthritis meds and didn’t realize that the narcotic did nothing for that pain and so all of my joints have joined into the fray.

I am trying to get those meds refilled. I need a new script, now pain management promised to take care of it and the office tech came and asked me which pharmacy I used and sent it, but the pharmacy didn’t get it and they can’t get through to pain management because they won’t talk prescriptions over the phone. So I tried calling the rheumatologist who originally gave me the script and I had to cancel this most recent appt because I am seeing an orthopedic dr and pain management right now and didn’t think being redundant was necessary. Now I am hoping he will rewrite that script without me going in for an appt. So far I haven’t heard anything and it is after 5 PM and I know the drs office is closed. She said she would call if there was a problem. So I will try the pharmacy soon since they also promised to call if it came in. I know how that works with the best of intentions and all.

My life is so confusing right now. I am stumbling through it the best I can. The narcotics are affecting my ability to think though. I am finding lots of writing mistakes on posts and correcting what I do see.