Autism / Autism Spectrum Support Group

Autism is classified as a neurodevelopmental disorder which manifests itself in markedly abnormal social interaction, communication ability, patterns of interests, and patterns of behavior. Although the specific etiology of autism is unknown, many researchers suspect that autism results from genetically mediated vulnerabilities to environmental triggers.

advice

my son michael had his tonsils and adenoids and he also had work done on his teeth on july 22 we did spend a couple of days in the hospital since then the only thing he really has ate is Popsicles it was the hardest stuff we have been through yet i feel like i have lost him all over again he is not responding the way that he was and now he is very sick coughing i no he is in pain but trying to get medicine down is hell and im afraid im hurting him worse everyone please pray for my baby he has been so sick and im praying he will come out of this its scary cause he is so sick and like i said he is not responding at all and i hate drs the hospital stay was horrible i actually got into it with some nurses i mean we are at children's hospital for crying out loud and these people acted as if they didnt no what autism is god help me thats all i can say sorry i havent been able to get on here much any advice for us thank you

will be praying for your little one!
now, lets get to the hospital, if you are still there or go back, you go straight to the hospital admin and DEMAND a meeting to discuss your child being discriminated against due to his disability of autism. tell the admin that if the nurses dont get educated real fast then it is very easy to start a class action lawsuit on a hospital that does not follow the disability act. i did this when mother was in er once, i am her legal gaurdian, they would not let me back to the er room with her, ignored my court papers, called the police on me...next day i went straight to admin and told him i know the law and so does he and i saw all those posters the judge ordered them to put all over the hospital stating that they were sued for not accomodating ppl with disabilities for every one that walked into that hospital to see, i also informed him that i could hold the hospital staff in contempt of court for going against a court order, and that my mother is the poster child of people with disabilities, he has pretty much been there from the day mother got sick so he knows what the deal is with my mom, anyways, within 30 minutes every employee of that hospital had orders that i walk through the ambulance entrance right along side my mother when she goes to the hospital for anything.
ignorance is no excuse for the nurses to not act professional with you and your little one, and also, you get human resources at the hospital involved too, they can make things happen. i would make sure i had meeting with hospital admin asap, you never know when u might have to go back, do not settle for a meeting with anyone other then the MAIN MAN/WOMAN IN CHARGE of the entire hospital. be prepared to explain autism, give them good websites to look at, and make them understand your child has a disability and if they are not accomodating that disability then they are breaking the law, and having nurses in a childrens hospital that have no clue about autism is most certainly not accomodating the child with the disability of autism. (i hate calling autism a disability, but there are times, like this, that being able to use the word disability makes things happen)

Hey hun....we went through the same thing....it took 3 weeks or more before Alex as much as responded to my voice! I was scared! I kept taking him back to the surgeon and she kept telling me.....it was his defense mechinism against the pain he was feeling......which didn't make any sense to me back then......cause he didn't feel pain like we do! I will say....that right after surgery.....I gave him whatever he wanted to eat......the doctor said....&quot;no limits....give him whatever he will eat!&quot; HUMMMMMM HE WANED SUBWAY! HE GOT IT! He got really sick...the bread was too much for the back of his throat....physically....the body took over.....his pain increased......and he reacted by zoning me and everyone/ thing out....I was young..and thought cause he didn't feel pain.....that he'd be fine.....ohhhhhh boy.....was I wrong! I agree with P....the hospital needs to be aware of his dx.....how/ what to do/ not do....and that there will come many with the dx of autism.....to a hospital......they need to be educated! I will say......for some reason......they seem to think that our kiddo's are just in existance......treat em as if they don't feel...or know whats going on in their surroundings.....they are heartless ppl! hugs hun......ya got my prayers!

thank you guys so much in already on it with the hospital im just so scared how he is feeling im so mad i will try to do something i dont ever want another family to go threw what we did ill keep you guys posted

ahhh hun. i've been thinking of you. first of all, i agree with p as far as the hospital and i agree with years that it may take some time for him to respond.

It's very traumatic to go thru a t&amp;a. what he doesn't understand is the more he drinks or eats and works that muscle in the back of the throat, the faster the pain will go away. popsicles are good, any type of soft food; mash potatos, macaroni and cheese, applesauce those things are good as well. the drinking and keeping that area in the back of the throat moist is important for now.

When my boys had there adnoids and tubes placed i gave the boys alot of cool soft foods like ice pops and ice cream.I then would throw in maybe a little soup or other soft food.I am glad you are going to take action with the hospital.you are in my thoughts and prayers that things start looking brighter your way.Tee

well guys just spent another six hours in the hospital my baby has been threw hell priscila i might need to call u cause all hell broke lose i cant believe these people right when we get there they say he is dehitrated sorry cant spell right now and needs iv fluids it took almost two hours then the dumb people only bring in two people she raised her voice trying too tell him they were band aids i told her he has autism she got smart with me and said that was the way she talk to all kids i dont no anymore i did talk to they head dr on staff i ask to speak with the main i will make some calls tomorrow he was in so much pain when we got there his heart was coming out of his chest why god why its so hard just pray for us i dont no how much more i can take

Oh, I just read your post about the ER. I'm sitting here crying. I'm so sorry your baby had to go through that. I'm a nurse and I'm just embarrassed and disappointed in my colleagues when they just don't take the time to understand or when they don't try to educate themselves when they are dealing with something that might be novel to them. My grandson has autism and my daughter has been through hell when dealing with the medical establishment. He had to have an EEG and it took about 4 months. Every time she took him it was a fiasco - no one understood and they thought a 2-year old with autism should sit nice and allow them to put a gazillion eeg leads on his head. The next visit they gave him choral hydrate and well it just did not work - he was walking around like a drunkin sailor but not enough to let some stranger place leads and goop all over his head. Then they had the nerve to get impatient with my daughter because she was trying to tell them that their tactics were not working because Jack has autism and cannot understand when they were telling him to hold still. I have been a nurse for 20 years and I have cared for one patient with autism (a young man of 20 who came in with a raging infection). He was so sick and confused. His mother was with him and she was trying to tell others that he he was not verbal and could be aggressive. Well, he did get a little out of hand and the first thing my charge nurse did was call security - Man I hate that. Then it turns into a mess. I threw them out and managed to get eye contact with him (mind you he did spit in my face) but I was able to connect with him and explained to him what we were going to do (he needed IV antibiotics). He understood English,he just needed me to show him what was happening and why we were all so upset and concerned. I asked his Mom if he used anything to calm himself and she told me he liked his headphones. Well, I got his IV in and got the doctor to prescribe an IV antibiotic that was intermittent (meaning I could wrap the IV site and just give him a two minute injection through the IV, no pain every 8 hours). I will never forget him. I hope he and his mother are doing well. His mother thanked me for not restraining him. She told me she tries not to bring him to the hospital because he just doesn't do well out of his own environment. Why can't we take that into consideration when we have a sick person? It really bothers me that children/people with autism probably do not get the best health care because us health care professionals are so ignorant, stressed, rushed -- whatever you want to call it but it doesn't give us the right to treat patients and their families unprofessionally. Emergency departments have professionals on call for everything imaginable, why not have a nurse or doctor trained to deal with special needs individuals and call them in when one of our special children need treatment? Sounds more economical than paying security guards to restrain them or pharmaceutical companies for sedatives. Just a thought. I'm sorry I'm rambling, I'll get off my soap box now. Take care. Peg

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