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I had virtigo about one month ago, and yesterday it came back.....now I can not drive for the remainder of the week. It puts such a burden on my life and my everday activites.

I was just wondering if this is common with celiac's?

If so is there anything that anyone does to feel better. I have to wear a sea sickness patch, it helps so that I am able to walk around for like an hour, but then I have to lay back down before I get sick

thank you

Amanda NY

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Interests:Jesus Christ, medical research, reading, playing my recorders (musical woodwind instruments), my 21 grandchildren, knitting, card making, playing computer games.
I love playing classical music on my recorders (I have a collection of expensive wooden ones, from sopranino to tenor), but also medieval dance music, Irish music and anything that is cheerful and is a challenge to play.
I have a lot of hobbies, and I do them in cycles. I can't do too many things at once or I get very frazzled, thanks to Asperger Syndrome.
I was diagnosed with chronic Lyme disease in June 2015.

Amanda, I used to get so dizzy that if I'd turn my head I'd vomit! It would either hit out of the blue in the middle of the day and last a few hours, or I'd wake up in the morning, unable to get up, and it would last up to three days then.

I haven't had that problem since going gluten (and many other things) free. I hope it stays that way!

Hoping for you that being gluten-free will help, because being so dizzy you can't function is awful.

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I have middle ear issues that make it hard for me to do things like grocery shop or visit museums. I carry chewable Bonine with me at all times and know to take it before things that I know will make me dizzy. I've not had continuous vertigo tho. It must be awful!!

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My friend has this very badly; in fact she's been out of work for 2 weeks because she falls over if she tries to walk! go see an Ear, Nose, and Throat doctor so they can tell you if it is Meniere's Disease, another ear issue, or related to Celiac.

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Vertigo can be such a pain. It can be caused not only by gluten but by yeast infections that settle in your ear. It is very helpful to get rid of the yeast infection and go gluten free. Try this website candidafree.com. Also there are exercises that stop the vertigo immediately. I learned this from an ENT doctor who charge me $175 and then I found it on the internet for free. It works everytime although sometimes you have to do it more than once. They are called the Epply-Applington movements. You can find them by googling Epply-Applington vertigo (I think, I did it over a year ago!) And then there are exercises you can do to keep it from happening. I also found them on the internet. I think they had the word Brandt in them. The Epply-Applington exercises take only about 2 minnutes, the Brandt ones about 10 minutes. I hope this helps. Oh yes, over the counter Clariton D will help get the swelling down in the ears and stop the symptoms. A fellow vertigo sufferer gave me this idea and it worked also.

Good Luck,

fritzicurls

I forgot to add that it helps if you sleep elevated for two nights after you do the Epply Applingotn movement and then sleep on your good side for five nights after that. Usually the problem is one ear. You can tell this by the room spinning when you do the E-A movements. I think the website also explains this. Also don't been down for about a week.

fritzicurls

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Guest Zmom

Guest Zmom

I used to have wicked vertigo.can't stand bad. I thing going gluten-free helped + a good chripractor. A good do- it -yourself treatment is acupressure. At the center of the base of the padded (pink) bottom of your foot that connects with the the arch is a acupuncture point called K1 (kidney 1) if you press REALLY hard or have someone do it it will help within a few(less than 5) minutes. I have done it laying on the floor unable to stand and it worked.

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Guest Zmom

Guest Zmom

zmom, when you say the padded pink part of the foot near the arch, are you talking about near the ball for the foot or near the heel of the foot? Thank you for the suggestion. Sounds great.

fritzicurls

Ball of the foot.The exact definition is "On the sole of the foot, between the second and third metatarsal bones,one third if the distance between the base of the second toe and the heel,in a depression formed when the foot is plantar flexed." If you feel the top of your foot, follow the V of the bones between the second and third toes to thier meeting point and take another finger while on that spot and put it on the corresponding point on the bottom of the foot that should be it.

Actually, the center of the heel is the insomnia point. Great point for a spouse or partner to message at bedtime.

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Guest nini

Guest nini

interesting about Vertigo. My grandmother (dad's mom) has had Vertigo for years... Dr.s have run all kinds of tests but never were able to figure out why. They did recently find a bunch of TIA's or mini strokes, but they don't think those were related to the vertigo. Is this possibly linked to Celiac?

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My grandmother has vertigo. She has been diagnosed with so many autoimmune problems (though not celiac) that the doctors just label her as having autoimmune disorder in general. I think she probably has celiac, but I don't think she's ever been tested.

Anyway...she started Tai Chi and says it helps the vertigo tremendously. It's funny, because my grandma is a pretty traditional lady and I was surprised when she started. But she loves it, does her exercises every day, and is so excited that she recently moved up to the intermediate level. She claims she really doesn't get dizzy at all anymore.

Good luck...I get waves of dizziness every so often, but not enough (yet) to really worry about. I'm hoping that being gluten-free will keep me from going down my grandma's path.

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Guest Zmom

Guest Zmom

Tai Chi is good for so many things. Its a good workout and also a powerful martial art.

I took a class in Chi -Lel Qigong and a lot of people were there for the second or third time because they were helped so much. www.chilel.com. QiGong is an internal martial art which means that the mind and will are more important to sucess than any limitations of the body. It activates the acupuncture meridians like tai chi does but it is about healing the body on a deep level.

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My mom suffers from vertigo quite often. The exact cause is still unkown. She has antiphospholipid syndrome--a clotting disorder that is autoimmune. She also has been tested for Lupus--one of her doctors says she has it, the other, I believe the hemitoligst, says no.

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coworker had vertigo for a few months- nearly had to quit- she ended up having B-12 shots and is much better. Since celiac causes malabsorption adn B-12 is hard to absorb anyway they could certainly be related. I now use a liquid form of B-12. It's supposed to have a higher rate of absorption.

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Yes, yes, Meniere's disease. Inner ear disorder, hearing loss, vertigo etc. I had it terribly until I stopped eating gluten and unless I have an accidental hit, I am fine. Took 6 years to figure it out but not before I was poisoning the crap out of myself with the healthiest whole wheat grain diet ever!!!

So, Gluten free bread is far from healthy but atleast now I am not sick. I just don't eat as much bread.

God luck.

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coworker had vertigo for a few months- nearly had to quit- she ended up having B-12 shots and is much better. Since celiac causes malabsorption adn B-12 is hard to absorb anyway they could certainly be related. I now use a liquid form of B-12. It's supposed to have a higher rate of absorption.

I'm pretty pumped that other people have this problem. I've had it pretty badly for almost a year now, maybe a little longer. It's not so bad that I can't function, but when I get it I have often have to sit down or stop wakling. It makes it hard to focus and it'll happen at random times. My celiac went misdiagnosed for about 6 years and I just started going on the diet in October. My GI told me that it might be B12, but my blood tests aren't back yet, so hopefully it's that.

What brand of liquid B12 do you use, and is it much more expensive than the vitamin pills? I'm still unsure about what brands are okay and I'm on a bit of a budget.

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I love this forum. It keeps reminding me I am not alone. I suffered from severe vertigo. Hospital 2 times. The patch I had to were caused major pain behind my eye, but I could not walk with out it. 2 days after stopping gluten all gone, only to return and not as severe with a glutening. I had minor vertigo for severel years, the kind where I would trip coming out of an elevator because my body had not stopped even though the elevator did Everyone use to laugh at me because it would never fail I would trip every time, it may have been 2 or three steps out but like clock work none the less. Thank the maker it is gone. I was low on B!2 also but my vertigo was gone with the diet before I got my injection. Good luck