Our Mission

Our mission at the Princess and the Pea Group is to establish and maintain a support group for those suffering with Ehlers-Danlos Syndrome and other connective tissue disorders. We strive to locate information gathered from medical specialists, independent research, and patients suffering with EDS, in order to create a forum for education, communication and compassion.We believe that a collective method of research is the only way to provide as much helpful information as possible.Promoting awareness and understanding and ultimately improving the quality of life for those suffering with EDS and connective tissue disorders is our goal.

Our war is finding a cure.Our battle is finding treatment.

Shannon Carlson Pam McDonald Tammy KinnearFounders of the Princess and the Pea Group