Let your voice be heard - Rare Moments Film Project

We want your voices to be heard. The RARE Moments film project is very simple. Submit
video/photo's based on the information we suggest on the website.

This will be a short film, with the end goal being to
present it to Francis Collins, Steve Groft, Bill Gahl of the National Institutes of Health (NIH). The Rare Moments team also hopes to send a copy to the
President. It will also be shown at the Global Genes Project annual
Tribute to Champions of Hope Gala in September. The video will also be
available online for people to watch, and we are hoping that it will also get
great social traction to help spread the word about this incredible community.

Every "rare disease" community that participates will get
recognition in the credits of the film and copies of the film.

We all know that "it takes a village." We are grateful
for your participation and look forward to seeing this magnificent mini-film.