Category Archives: UTIs

So Pooka has never had a symptomatic UTI. She is colonized with e-coli and we have given her 1g of d-mannose daily for almost a year now. But on and off for the past week or so her diapers have wreaked of ammonia. The advice I would give myself is “push fluids” but nothing has really changed in her fluid

We are excited to announce that we have a new profile in the Adult Stories section. What makes this story special is that you will also find Angela listed on our Physicians & Therapists page as well. Angela Dockter is a healthy 44-year old Holistic Healthcare Practitioner who was born with myelomeningocele L3-S1 and attributes her unassisted mobility to the

My dd was released from her prophylactic antibiotic and we’re hoping she’ll colonize with no incident but I’m going to start the d-mannose powder as well. What should be the dose for an almost-6 year old, 45 lbs?

We have a different story than most. I was 28 when I had Lili, our first of three children. She was a bit slow to meet the milestones (never crawled, walked very late, couldn’t hop, etc), but we were always told she was just a bit behind physically. After being successfully potty trained for over 2 years, she suddenly started

Bladder Continence

SPINA BIFIDA CHILD

“I GIVE THE MACE PROCEDURE 5STARS. MY GRANDCHILD HAS HAD THIS SINCE HE WAS ABOUT 2YRS OLD AND HE IS 10NOW. HE HAS NEVER HAD ANY BAD EXPERIENCE. WE FLUSH HIM EVERY OTHER NIGHT AND THIS KEEPS HIM CLEANED OUT; HE DOESN'T HAVE ACCIDENTS ON HIMSELF AND HE GOES TO SCHOOL AND IS JUST LIKE EVERY OTHER CHILD. THEY SEE NO DIFFERENCE IN HIM AND HE HAS NEVER HAD TO BE EMBARACED ABOUT SMELLING OR USING THE BATHROOM ON HIMSELF. THIS IS A SCHEDULE THAT WE STICK TO, THIS HAS BEEN THE BEST THING FOR THE WHOLE FAMILY!!! LOVE IT !!!!!”

Molasses are magic

“My baby was on Miralax from 4 months to 10 months old. Despite being entirely breastfed, she became constipated within days of starting Ditropan for her bladder. I hated having to give her the Miralax and never even achieved very good results. I heard about using emulsified fish oils and blackstrap molasses as an alternative. I have to admit that I was skeptical at first. I started with just the fish oils, which did make the stools very slippery but not soft enough. I then added the molasses - wow, magic!! The stools are now the perfect consistency, much better than I could ever achieve with Miralax. And we have the added health benefits of fish oils (heart and joint health, brain health, etc) and molasses (great source of iron that won't cause constipation). The only reason for 4 stars instead of 5 is that my baby initially was not a fan of the flavors and it takes a bit to find the perfect dose. However, I am finding easier ways to get the supplements in and flavored fish oils help too. We are also able to mix her daily probiotic right in with these supplements to really round out her bowel health.”

Diaper cream and cloth diapers

“I swear by cloth diapers. Not only does it greatly reduce the incidence of diaper rash, but also help reduce waste and reduce cost. Cloth diapering these days is very, very simple - no more diaper pins and folding! Seriously soooooo easy! When there is diaper rash, you can still use diaper creams, but have to be careful to not get the creams onto the diaper (some of them can damage the wicking/drying ability of the diaper). I just put a single Via paper towel between the diaper and baby to protect the diaper when using creams. My LO recently had a fungal diaper rash after being on mega antibiotics for a presumptive UTI. My favorite cream to use was a mixture of Critic-Aid (by Coloplast), any OTC anti-yeast cream (like Vagisil), and hydrocortisone. I hated using medicated ointment, but it cleared the rash up quickly, so I could go right back to plain cloth diapers without the paper towel and only natural creams when needed.”

- Tracy

Water therapy in all forms is amazing!

“My 11 year old with SB is a mermaid! She is the first one in the pool or lake and the last one out of our 5 kids. She tells me she feels "lighter" in the water and "more mobile." I have noticed that after our aquatic therapy sessions or a week at the lake, she is much more confident, mobile, and generally in better health. I highly recommend finding a therapist who is willing to work in water or find a swim instructor who has experience with special-needs kids.”

- Lydia Wells

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