Sunday, November 15, 2009

"Conjoined Twins: After Separation" on TLC tonight!

I just want to remind everyone to watch TLC tonight at 9 pm ET. The show we are on, called "Conjoined Twins: After Separation" is going to air. We had the opportunity to watch it this afternoon, and it is outstanding! You will get to see Erin and SOLOMON together. I will post more about this tomorrow, and we would love to hear what you think of the program. Our internet and phone are down right now, so I am posting this through my phone, and it's way more effort than I have time for now. We just got back from our trip to WV for SOLOMON's graduation, and we're still trying to unpack and get the girls ready for bed. The weekend was fabulous, and we were thrilled to spend time with the amazing friends we have met on this journey, and Erin was ecstatic to see her dog. We won't have him with us full time until right before Christmas, but we are one step closer. If anyone is interested in learning more about paws4people, the organization giving Erin her service dog, you can visit their website at http://www.paws4people.org
More tomorrow. Have a great night! Enjoy the show! ;0)

Amazing show :) I remember watching the first show ya'll did and have been following ever since! The girls are getting so big and have come so far. Your family is beautiful. Erin and Solomon were SO cute together.

Did anyone out there record the show? I'm Melissa's sister and live in Iraq, so I miss all of these things, most of all, my incredible neices!!! If you did, I have an APO address that you could send a DVD to (hint, hint, hint - please??)DeeDee

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Erin Faith

Born as a conjoined twin and separated on June 19, 2004. Erin suffered spinal cord ischemia (stroke to her cord) sometime during the surgery, leaving her paralyzed from mid-chest down. It is a blessing that she survived the surgery and the stroke, and she is truly a gift from God.

Jade Hope

Jade is Erin's identical twin sister. While she outwardly seemed to have the most complications during the separation surgery, she deals with very few long term affects of being conjoined. You will likely find Jade running to get somewhere, and she keeps us laughing with the things she says. Jade is another gift from God!

Taylor Joy

Taylor is our sweet girl who truly is a Joy. When she was 3 years old, we found out that she had a tumor at the base of her spinal cord. It was exactly one year after her sisters' separation surgery. This spinal cord lipoma, while benign, was wrapped around her spinal cord, completely enmeshed with her nerve roots. The tumor was tethering her spinal cord, and Taylor was losing function in her bladder, bowel and right leg. During the first surgery, they were able to remove approximately 60% of the tumor. Her cord became retethered almost immediately because of scar tissue, and Taylor had her second surgery in September of 2007. We are fairly certain her cord is retethered again, but because the risk with each surgery on her spinal cord increases exponentially, Taylor's neurosurgeon wants to postpone another one as long as possible. We now weigh the risk of losing more function from her tethered cord with the risk of losing function from the surgery. There is a fine line. Despite all of this, Taylor maintains her positive attitude and has a very sunny disposition. We could not be more blessed!

About Me

Jade Hope and Erin Faith Buckles were born on Thursday, February 26, 2004. They are true miracles who have beaten the odds. Conjoined from mid-chest to naval, the girls shared a pericardium (sac around the heart), diaphragm and liver. Their hearts shared a small electrical connection and beat in synch. Erin's heart was 60% in Jade's chest. These beautiful babies were born to Marine Gunnery Sergeant (now Master Sergeant) Kevin Buckles and his wife Melissa. They were also welcomed into this world by their brother, Kevin Jr., and sister, Taylor Joy.
Erin and Jade were successfully separated on Saturday, June 19, 2004. They returned home on Friday, July 2, 2004, just 13 days after surgery. We later learned that Erin suffered a stroke to her spinal cord that left her paralyzed from mid-chest down. The damage occurred at the T3-T7 levels of her spinal cord. The injury is considered incomplete, so we have great hope for at least some recovery.
Taylor Joy was diagnosed with a tumor on her spinal cord in June of 2005, and she has undergone 2 surgeries since then to try to preserve her ability to walk.