Rare Disease Day

In honor of this year’s Rare Disease Day theme, “Patient Voice,” we are excited to launch an Expression of Hope e-book showcasing 10 years of moving and inspiring artwork produced by the lysosomal storage disorder (LSD) community. The e-book a...

The countdown is on!! Only 12 days left before rare disease communities around the world unite to educate, inspire and raise their voices this Rare Disease Day 2016. Watch the 2016 Rare Disease Day video from EURORDIS and check out their Rare Diseas...

For several years, Genzyme offices around the world have been recognizing Rare Disease Day as a way of motivating, inspiring and connecting to a global community dedicated to improving the lives of people affected by rare diseases. As the rare disea...

Since rare diseases are at the heart of what we do, International Rare Disease Day is extremely meaningful to us. It motivates, inspires and connects us at Genzyme not only as colleagues joined by our profession, but as individuals with a desire to ...

As Rare Disease Day day approaches, you may be thinking of ways to make the most of the day by highlighting your patient organization, the community you represent, and perhaps hoping to translate that into funding for your group.
In the U.S., Give R...

It’s hard to believe, but 2015 Rare Disease Day is less than 3 months away! R.A.R.E. Project/Global Genes would like to help you get ready by offering a free webinar titled “Ideas and Suggestions to Host Your Own Rare Disease Day Event” on Tue...

Since rare diseases are at the heart of Genzyme, International Rare Disease Day is extremely meaningful to us. It motivates, inspires and connects us at Genzyme not only as colleagues joined by our profession, but as individuals with a desire to par...

Rare Disease Day continues to inspire and connect a vast global community dedicated to improving the lives of people affected by rare diseases. In our view, this year’s theme of “Join Together for Better Care” couldn’t be more timely and a...