Request for patient input re: NIH funded study by Lipkin

Many patients have expressed concerns about the upcoming NIH funded Lipkin Study. These concerns have been among other items, patient cohort selection, the physicians who are selecting patients and the political ramifications of the study results with regards to HGRV's.

The International ME Association administrators would like to collect patients questions and concerns and draft a letter based on this patient input. The letter would be sent to Dr. Lipkin and all parties involved in this study including Dr. Collins.