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Tag Archives: Living Life

Today is PKD Day. March is Kidney Month. March 12th was World Kidney Day. This reminds me of how I like to celebrate my birthday. November 11th is my actual birthday, but every day when the clock says 11:11, I have mini celebrations. Then, come November, I like to celebrate all month long!

So why not celebrate my kidneys for a whole month too?

I have plenty to celebrate. After waiting a year to take the MRI I blogged about a few blogs ago, my results came back and my wonderful doctor said my kidneys look pretty much the same as they did a year ago! Mind you, they didn’t look great a year ago. They were already each three times the size of a “normal” kidney due to swelling and cyst growth. BUT, they haven’t gotten any worse, and I’m so happy!

I feel like I won the lottery! I’ve cried several times since hearing this news. The news means so much…

It means I have more time. More time to enjoy my current kidneys, even the left one – the one I complain about regularly (it has a tendency toward being a jerk). More time to do the things I want to do and enjoy my life in its current status with my current kidneys before having to think about the possible next step. Chances are strong that I will someday receive a donated kidney, quite possibly from a loved one. Kidney transplants do not frighten me. They are highly successful and highly necessary. But, I’d still like to put it off (for me and for my future donor) as long as possible. But if and when the time comes, I will not hesitate. I love life, and I will do whatever it takes to live.

It means that if my husband and I decide to have another baby, we can do so without worrying too much about whether or not my kidneys can handle it. Now, I have a little more faith in them. Of course, that road won’t be easy. It comes with complications worth discussing. Estrogen increases cyst growth, and getting knocked up releases a flood of estrogen. Kidney infections are typically treated with Cipro (Ciprofloxacin), a very strong antibiotic that’s a definite no-no for fetuses, preggos, infants and nursing mommies. If I was to get an infection along the way, and chances are that I’d get at least three, I’d have to be hospitalized and hooked up to an IV to treat the infection. It’s a lot to think about. We haven’t decided yet, but I’ll keep you posted.

It means that we’ve been doing something right. Research shows that water is important and on recommendation from my doctor, I’ve been drinking a gallon of water a day to flush and saturate my kidneys. Also, animal protein has been linked to harming the kidneys and speeding up cyst growth. So, originally, I switched to a 100% vegetarian lifestyle. After six months or so, my husband and I started incorporating fish and important meats, like bacon, back into our diet. Let me tell you, a little bacon really makes a veggie burger sing! Now, we’ve found our balance. We eat mostly veggies and fish, occasionally incorporating meats and poultries. It works for us. And (knock on wood) it seems to be working for my kidneys.

My husband, Jason, is a Godsend. He walks with me and holds my hand through all of the crazy things this crazy life brings. He has since the day we met. Since my first Walk for PKD last year, he has been wearing a yellow “Donate Life” bracelet. He never takes it off. He loves meat (He’s a man! Plus, he’s from Omaha!), but he didn’t hesitate to give it up with me, for me. Of course, I picture him binging on burgers and Slim Jims in his car on his way to work and whenever I’m not around, but that’s OK. In similar fashion, he’d previously supported every silly diet I did back before being diagnosed, from every detox diet to Atkins (very bad for kidney function by the way!), so why stop now? I’ve said it before and I’ll never stop saying it, my husband is the most amazing man on the planet! If it wasn’t for him… well, I don’t even want to think about it.

For people with Polycystic Kidney Disease, everyday is PKD Day. If you or your loved ones have a disease, any disease, you have it and are affected by it every day. Whether or not you have PKD, please celebrate with me this month. And, celebrate YOU and your life every day. Celebrate each and every opportunity you’ve been given. Celebrate your birthday, the month of your birth, the time you were born. Celebrate sunrise and sunset each and every day. Love your life and everyone in it.

We must appreciate the wonderful people in our lives and the time we have been given to spend with them. This life is a gift, a blessing, a miracle. However you choose to define it, it’s pretty stinkin’ awesome, and we have every reason and every right to celebrate.