Hoop Dreams

The FSH Society is a nonprofit, patient-driven organization supporting research and education for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. Founded in 1991 by two individuals with FSHD, Steve Jacobsen and Daniel Perez, the FSH Society is the world’s largest and most progressive grassroots network of patients, families, clinicians and research activists. Among the most prevalent of the muscular dystrophies, FSHD affects an estimated 870,000 people worldwide.

Basic research in animal models is crucial to understanding and treating FSHD. Mouse Specifics, Inc. technology has been used in discoveries in numerous preclinical models of neuromuscular disorders, including Duchenne muscular dystrophy, Limb Girdle Muscular Dystrophy, and Spinal Muscular Atrophy.