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hello

I thought i had registed before but cant find my details...so hello again !
I am from the UK,dx in 1978...i have sle ,raynauds,sjogrens,vasculitis,sticky blood,spondilitis,fibromyalgia,ibs.
hope to make some new friends

You sound rather like me - I registered then never signed on until MONTHS later! Now I'm on the board almost daily.

I have SLE, dx'd in 2002 so I don't have the experience you do - and I'll be glad to learn from you! My symptoms are fatigue, some pain and definite sun sensitivity (hence my moniker). I take plaquenil, but that's about it - I take herbs, vitamins and supplements that I believe help me control pain and increase energy - with my doctor's permission.

hello there...so nice to meet you too.
I take several lots of meds,methotrexate,warfarin,dothiepin,predinsolone ,folic acid,plaqunil,zoton,vitd,calcium,sno tears and glandasane..
good jobi cant run..i would rattle !
hope u have alovely day x