Discussions By Condition: Mouth conditions

Extreme mouth ulcers along with many other strange symptoms.

For over a year I have been getting very severe blisters on the roof of my mouth. They seems to occur every other month, the week after my period. It starts with the roof of my mouth getting numb, then when I eat or drink, I get a huge blister, like saliva is backed up. It eventually pops, peels, and is very raw and tender for up to a week afterwards. They ONLY occur on the right side of my mouth, and almost always in the same spot.

I have seen mulitple doctors. They have done blood work, biopsies, allergy tests, and nothing has shown any abnormalities other than my natural antibodies are low. Therefore, I take 200mg of Alpha Lipoic Acid with 400mg of L-Carotene 2x daily as recommended by my doctor. This seems to be helping. The blisters are less frequent but I have other symptoms now.

The past two outbreaks I have had have been on my face instead of my mouth. They look like hives or bee stings. They always show up in the same spot, one on my nose and one on my chin. They are there for one day then disappear by morning.

Another symptom is insomnia. It is IMPOSSIBLE for me to fall asleep without taking Tylenol PM, Advil PM, or 5mg or more of Melatonin.

Along with all that, my jaw is always extremely sore at my right joint. It pops like a knuckle and is very stiff in the morning.

The weirdest thing to me is this strange discoloration on my shoulder. It is about the size of a dime, in a circle shape. It never goes away, showed up around the time my mouth blisters started. When I feel them, or the hives on my face coming on, the place on my shoulder always itches and becomes swollen and dark red, when it is usually just a shade or two darker than my normal skin tone.

I know my symptoms are strange and seem unconnected. However, I find it strange they all had a similar time of unset. whatever it is, it is NOT an STD, I have been tested multiple times, and my boyfriend, who is the only person I have ever had sex with, has no symptoms and has also been tested for STDs.

Could all these symptoms really be caused by over working myself and having a weak immune system as my doctor thinks, or is there an underlying cause? He told me it is NOT autoimmune, nor is it life threatening. I'm not really worried, but I'd like to know if there is something other than what I am already doing to help remedy my symptoms.

2 Replies:

My husband has similar weird symptoms, and also bleeding gums. He's been to the dentist, doctor, and dermatologist. They have no idea. I'm sure it's all related (mouth sores, bleeding gums, strange circular lesions on his body, occasional blisters on the body). No insomnia, though. Let me know if you get diagnosed, and I'll do the same.For over a year I have been getting very severe blisters on the roof of my mouth. They seems to occur every other month, the week after my period. It starts with the roof of my mouth getting numb, then when I eat or drink, I get a huge blister, like saliva is backed up. It eventually pops, peels, and is very raw and tender for up to a week afterwards. They ONLY occur on the right side of my mouth, and almost always in the same spot.I have seen mulitple doctors. They have done blood work, biopsies, allergy tests, and nothing has shown any abnormalities other than my natural antibodies are low. Therefore, I take 200mg of Alpha Lipoic Acid with 400mg of L-Carotene 2x daily as recommended by my doctor. This seems to be helping. The blisters are less frequent but I have other symptoms now. The past two outbreaks I have had have been on my face instead of my mouth. They look like hives or bee stings. They always show up in the same spot, one on my nose and one on my chin. They are there for one day then disappear by morning. Another symptom is insomnia. It is IMPOSSIBLE for me to fall asleep without taking Tylenol PM, Advil PM, or 5mg or more of Melatonin. Along with all that, my jaw is always extremely sore at my right joint. It pops like a knuckle and is very stiff in the morning. The weirdest thing to me is this strange discoloration on my shoulder. It is about the size of a dime, in a circle shape. It never goes away, showed up around the time my mouth blisters started. When I feel them, or the hives on my face coming on, the place on my shoulder always itches and becomes swollen and dark red, when it is usually just a shade or two darker than my normal skin tone. I know my symptoms are strange and seem unconnected. However, I find it strange they all had a similar time of unset. whatever it is, it is NOT an STD, I have been tested multiple times, and my boyfriend, who is the only person I have ever had sex with, has no symptoms and has also been tested for STDs. Could all these symptoms really be caused by over working myself and having a weak immune system as my doctor thinks, or is there an underlying cause? He told me it is NOT autoimmune, nor is it life threatening. I'm not really worried, but I'd like to know if there is something other than what I am already doing to help remedy my symptoms. Thanks

Did you ever find anything?I have similar symptoms. I get circular rash type things I wouldn't really call them "blisters". They have a raised ring around the rash. They are always in the same place (the right corner of my mouth are 2 and middle of my forehead). I get sores in my mouth also and those are also round. They are more like blisters but not ones with fluid that leaks out or can be popped. The do start out a little swollen and then turn flat and wrinkled. I believe that part of what I have is connected to chronic sinusitis because the whole bunch of weird things I had would all come on in a pattern. I also have joint pain that flares up at the same time.My eyes would not tear normally and tears would burn like crazy and make a rash on my eyes. My mouth would get so dry and then I'd have mouth sores.I would also get extremely tired when my frontal sinuses would hurt and I'd get very blurred vision. Later in the day, it would get better some.Do you have any other symptoms?It took me a while to figure out that a big part of it was chronic sinusitisI took pictures and kept notes on the flare ups.