About

What is Crohn’s Disease?

Define: Crohn’s Disease
Crohn’s disease is a disease of the digestive system which may affect any part of the gastrointestinal tract from mouth to anus. As a result, the symptoms of Crohn’s disease can vary significantly among afflicted individuals.

The Intended Purpose of This Site:

With little hope of ever finding out what was wrong with me, I happened upon a random story by a young man named Matt who had published his story of dealing with a Crohn’s diagnosis. It gave me back my sanity when the doctors could not seem to help me. His story allowed me to go to my doctors and ask for the Small Bowel Follow Through, which lead to my diagnosis. My hope is to pay forward that gift to someone else; to let those who share this disease with me, know that you are not alone. The sole purpose of this web site and my sharing my story with those who care to come here, is to help where I can. If I can assist one person to be diagnosed one day earlier- then it was all worth my baring my soul on the world wide web.

The information contained within “My Story” and “My Diagnosis“, though long, is to educate you about Crohn’s by reading a first person account of how I began on the road to my diagnosis. This disease has transformed from a rare occurrence, to a national issue as the diagnosis occurrences continue to climb. It is my hope that this blog will help you find the medical attention you need and comfort of knowing that you are not crazy, that this a real disease and that unless treated, it will kill you.

Hi, I have indeterminate colitis that looks more like ulcerative colitis. My doctor has been trying to persuade me to start Remicade for over a year but I’m concerned about the side effects, especially because I have a family history of (lots of) cancer. I’ve been thinking it would be healthier to have my colon removed. This just seems logical to me. However I have see many surgeons and GIs and all of them say I should try Remicade first. I don’t understand this. I know that you have Crohn’s, not Ulcerative Colitis. But if you did have ulcerative colitis, what would you do-Remicade or total colectomy? I’m terrified. I’m very ill and can’t work consistently. Thank you.