Tag: navigating the Melanoma maze

If you had told me 30-40 years ago I would be spending most of my working life shepherding cancer patients back into mainstream medicine; I would have thought it a ludicrous idea. But – this is what I do. The movement that I was a part of from the 1970’s forward was inclusive of conventional medicine. It was about improving lifestyle, good nutrition, stress reduction and how to develop strategies that work whilst you had mainstream medical treatments. The work then was a value add to to the best conventional medicine available.

Part Two: In this Easter edition of The Australian Weekend Magazine, (available online by subscription or in the Magazine) Richard Guilliatt in his article Wellness Inc. takes us on a journey of reality into the current day wellness industry. You can also try the following link to read this story.

The Wellness Industry is laced with promises and certainty; New Age philosophies and platitudes. Which sounds lovely, but it is not a replacement for conventional medicine. Many young cancer entrepreneurs are following the premise popularized in the last decades–that the mind can change everything. Try focusing on a mole on your body for a day , week month or year and see what influence the mind can have? Let me know if it goes away because you asked it to! You can change anything with your mind is a dangerous premise that has winded its way in the wellness movement. I have had patients who have believed implicitly in the power of the Course in Miracles and studied it intensely as the only treatment for breast cancer. Unfortunately like most patients who neglect medical treatment, they died due to painful, fungating tumours.

Then, there are young women who have had cancer and who claim to have had cancer. One such newsworthy young woman Belle Gibson; who claimed to have had many cancers, when exposed now says she was misdiagnosed. In a strange way Belle has helped to lift the lid on the wellness industry that she desperately wanted to be a part of and is responsible for breaking the bubble of deception that cloaks the wellness movement. All is not as it seems. The Wellness Industry is ill and for our physical and psychological wellbeing – we need to take a long hard look at the remedies.

If you had told me 30-40 years ago I would be spending most of my working life shepherding cancer patients back into mainstream medicine; I would have thought it a ludicrous idea. But – this is what I do. The movement that I was a part of from the 1970’s forward was inclusive of conventional medicine. It was about improving lifestyle, good nutrition, stress reduction and how to develop strategies that work whilst you had mainstream medical treatments. The work then was a value add to to the best conventional medicine available.

Over the years the concept changed; influenced by idealism – not fact. Cancer patients were becoming vegan, raw vegan and juicing and green smoothies became fashionable, positive thinking, meditation, colonics and enemas were all geared at effecting the perfect remission from cancer as well as promises of “awesome wellness”. Just when you think you have heard it all – “people are going bananas – literally!

Yes – you read correctly, people have started eating just one fruit, the return of the mono diet eg Freelee the Banana Girl http://abc.net.au/news/6360232and then the banana runner who claims her diet and lifestyle influenced her cancer : Her book “Raw Can Cure Cancer” is a claim that must be substantiated along with her reported cancer-related medical history. If you feel tempted to try any of the whacky fad internet/book diets – Please take a look at the following site first – testimonials from folk who tried the whacky diets with dire consequences: http://www.beyondveg.com/

Back to Richard Guilliatt’s article where he talks of young “life” coaches, meditation teachers and health and wellness bloggers within the Wellness mix. A harmless business? Far from it.

Keep your Fraud-o-meter active and Alert!

There are many more out there that would fit the bill for inclusion into Guilliatt’s news piece and no doubt there will be more revelations to come. Far from harmless; these sweet faced ill informed young women I’m sure, or at least I hope, have no idea of the influence and impact they are having on the lives of cancer patients. Their blogs tell similar stories; their cancer cure lifestyle changes sound so easy, so right and so non toxic; after all how can vitamins, attitudinal healing or a green smoothie harm anyone?

We live in times when anyone can make themselves famous without having earned their stripes, studied or even had a life long enough to be qualified to advise people what they should do with their lives.

If you are following or encouraging someone else to follow their unqualified information and lifestyle advice you will likely exacerbate illness. Their influence may even contribute to your death or the death of a loved one. If this occurs – will the blogger or author take responsibility for their poor advice? If this were your wife or husband or child or sibling – how would you feel? Cancer is complex. Conventional medicine doesn’t have all the answers either – but early diagnosis and early treatment by conventional medicine clearly leads to life extension across many cancers. This I know having seen tens of thousands of cancer patients in my 40 year career who recovered from cancer following the middle-path approach. Holistic medicine in order to be ‘whole’ must be inclusive of Conventional Medicine.

We are now seeing hundreds of Wellness “Cancer-cure” bloggers who can appear to have knowledge merely because they have had or still have cancer. Walking experiments themselves, they advise with surety gathering followers along the path like in the fairytale – The Pied Piper of Hamelin

Richard Guilliatt poses the question – What do these people have in common – they are young, new age, savvy with the internet and social media and they are a part of dangerous sisterhood peddling unqualified natural living and “cure cancer” philosophies to the online masses.

The message is clear for anyone dealing with cancer – Buyer beware! Be careful from whom you are taking advice. Where cancer is concerned – never compromise on qualified advice.

A more senior element quoted by Gulliatt, an elder of TV fame who has influenced many cancer patients to take the road to healing Cancer with the now illegal Black Salve – Tony Barry is one of those all Australian ‘larger than life’ fellows that has appeared on our TV screens for decades. He promotes the use of black salve and although he continues to have melanomas that he treats with Black salve, he is still singing the praises of it’s success as a cancer cure. The fact that he has had a leg amputated due the advancement of his disease seems to pass by as it was written in to the last TV series screened on ABC TV: The Time of Our Lives. As the character Ray – a car on a wheel jack drops on his leg – and as a part of the show – his leg is damaged and he undergoes an amputation.

As Richard Guilliatt reports, the real story is that a fungating tumour (melanoma) the size of a mandarin, burst through the skin on his leg. Surgeon’s accordingly amputated the leg. At that time in 2013, for 6 years the actor had refused surgery, chemotherapy and radiotherapy. Is the melanoma being held at bay by applying Black Salve which apparently he still uses? I don’t know what Tony Barry’s brand of melanoma is – but all cancers are different and by nature – some grow slowly. Superficial spreading melanoma; the most common type can be slow growing.

Superficial spreading melanoma is a form of melanoma in which the malignant cells tend to stay within the tissue of origin, the epidermis, in an ‘in-situ’ phase for a prolonged period (months to decades). At first, superficial spreading melanoma grows horizontally on the skin surface – this is known as the radial growth phase. The lesion presents as a slowly-enlarging flat area of discoloured skin.

An unknown proportion of superficial spreading melanoma become invasive, i.e. the melanoma cells cross the basement membrane of the epidermis and malignant cells enter the dermis. A rapidly-growing nodular melanoma can arise within superficial spreading melanoma and start to proliferate more deeply within the skin. SOURCE: http://www.dermnetnz.org/lesions/ssm.html

Like Jess Ainscough (Wellness Warrior) whose slow growing epitheloid sarcoma progressed at the expected rate – so too melanoma’s follow a similar pattern. I have been to too many “Black Salve” funerals – including naturopathic practitioners, naturopathic teachers and integrative doctors who succumbed to its undelivered promises.

I have always liked Tony Barry as an actor. People with such a public persona have a big influence on society. His position as narrator in the DVD One answer to Cancer has influenced perhaps millions of people to use Black salve on cancers. Some may be benign whilst others have the potential to spread into the lower layers of skin and through the lymphatics. In the public interest questions must be asked about the efficacy of this treatment (developed would you believe out out an early Medical technique – Moh’s chemosurgery!!)

It was disappointing and to me rather obnoxious; that when questioned about Black salve Tony Barry’s response was that his survival shows that the “cancer industry” doesn’t have all the answers. “People need to take control of their lives” he says “Because if you put it in the hands of these buggers ( meaning the medical profession); their model isn’t based on wellness – it’s based on sickness.”

With regard to Tony Barry, Jess Ainscough and others – If people wish to experiment on themselves – well it is their right even if misinformed. But when they peddle their “cures’ to the masses while still a walking experiment themselves – that I have a problem.

When the surgeon who amputated Tony Barry’s leg below the knee read the Weekend Australian Magazine, he must have sat down shaking his head in disgust! Another doctor whom I know who featured in the DVD One Answer to Cancer lost his life to a brain tumour refusing conventional treatment with a belief that natural medicine would cure him. One answer to cancer doesn’t seem to have the answers to cancer.

Today on Navigating the Cancer Maze I speak with Prof Brendon Coventry about melanoma and in particular, vaccines against melanoma. But more than a melanoma treatment, Cancer Vaccines are showing up as not only as a part of innovative and integrated oncology approaches; but as likely treatments for other types of cancers that have failed conventional treatments such as radiation and chemotherapy protocols.

Today on Navigating the Cancer Maze I speak with Prof Brendon Coventry about melanoma and in particular, vaccines against melanoma. But more than a only a melanoma treatment, Cancer Vaccines are showing up as not only as a part of innovative and integrated oncology approaches; but as likely treatments for other types of cancers that have failed conventional treatments such as radiation and chemotherapy protocols. For example Jeffrey Deslandes,who after 4 recurrences of NH lymphoma – found his success with cancer vaccines. He is 9 years clear of the disease.

Prof Brendon Coventry with Grace Gawler

The combination of Surgical Oncologist in combination with a PhD in Immunology – is rare; but this is what Prof Coventry brings to the cancer “treatment table”. He has many years experience in cancer research, vaccine therapies and the role of the immune system in cancer control.

Remember the show is for you and sponsored by our charity – The Grace Gawler Institute. It is free to air and free to listen live streaming within an hour of live broadcast. It is archived indefinitely on my Voice America Page. Crucial to the shows intention – to educate patients and families about the availability of scientifically valid cancer treatments and safe and effective complementary medicine; we ask that you forward the ecard (available on the website) or URL to those you know who are trying to navigate the increasingly complex cancer maze.

Every week, some 160,000 people die of advanced cancer around the world, despite our best attempts at cancer treatment globally. Some $32 billion is being spent on oncology drugs and the USA National Cancer Institute/ NIH spends about $5.2 billion on cancer research, per annum. Sadly, cancer has remained a tremendously costly public health problem of major proportions for over 5 decades, and our progress has been puzzling slow towards solving this using standard methods.

On today’s show, Navigating the Cancer Maze, my guest Professor Brendon Coventry, an Adelaide-based oncology surgeon suggests there may be another way to approach the problem and shows that the immune system my hold the answer. With a special interest in Melanoma Surgery, he is a clinical researcher whose interests include anti-tumour immune response in human malignancies, tumour Immunology and cancer vaccine treatments.

His group’s research paper, published in 2014, entitled “Vaccinia Melanoma Cell Lysate Vaccine (VMCL) Trial for treatment of advanced Stage IV Melanoma with and without Chemotherapy”, captured the attention of medical and scientific community. Trial conclusions reported high complete response rates (where all cancer disappears) of 17%, with useful clinical responses occurring in nearly 80% of patients overall (slowing the disease), and over 15% of patients experiencing survivals past 5-years, with essentially no toxicity. The longest survivor now remains alive for over 14 years. These response rates and survivals are unusual for advanced melanoma. The researchers reason that the repetitive and prolonged delivery of the vaccine therapy might hold part of the clue, because this was a strikingly different approach to that used in other trials.

At this weeks Meeting of Minds in Brisbane (LtoR) Martin Ashdown with Grace Gawler and Prof Coventry

Prof Coventry with colleague Martin Ashdown, have now developed a remarkable understanding of how the human immune system continuously oscillates in a dynamic fashion. The timing of ‘when’ the therapy dose is precisely delivered in synchrony with each individual patient’s own immune system waveform or cycle might hold the very key to improving cancer treatment, thus leading to better survival.

Martin Ashdown says: …..”The concept of immune monitoring and accurately synchronizing therapy (immune synchronization), brings a new level of science to oncology. The published mouse experiments and human clinical trials, together with our knowledge of physiology tells us this is the way forward, particularly with the new cancer immunotherapies. This approach potentially has the triple benefit of increasing efficacy, lowering toxicity and substantially reducing the cost of treatment”

Professor Brendon Coventry is well crendentialled

Professor Brendon Coventry BMBS, PhD, FRACS, FACS, FRSM is an Associate Professor of Surgery at the University of Adelaide and Senior Consultant Surgeon (General, Breast-Endocrine, Surgical Oncology & Trauma Surgery) at the Royal Adelaide Hospital since 1993.

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