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Suggestions and experiences for Juvenile Scoliosis

Hi all

I am a father with 6 years old girl who was diagnosed with idiopathic scoliosis in march 2014. On June the orthopedist measured the angle and it was 20 degree. We were told just to wait and we scheduled the next visit on beginning of January. On January the curve was worsen to 25 degree and our orthopedist said that our daughter should wear a brace. On that moment was like we were the most unlucky people in the world. While we were driving back home we were without words. The problem is that we don't have orthopedist specialized in scoliosis in Albania so had to go in Greece. We ordered the brace in Ioannina and we arranged the visit with orthotist after two weeks. After almost one month we went in Greece to put the brace on and this day was even worse. Our daughter couldn't even breathe. She was walking like a robot. It was like a bad dream that would not never ended. The first two days were nightmare. She was crying,complaining. She could not sleep the whole night. After the first week things start to change. She started to get used with her new white friend. Now she has got some callus on the rib region where the brace tight her more. She feel some pain on axilla and hip region as well. Today is one of our happiest day. We performed an X-ray after 20 days wearing the brace and the correction was great,close to 0 degree.

I am posting this because i need advises from other parents that have children diagnosed with JIS. How the scoliosis goes on with the years.
Please help me your experiences.

Dajl father of Ajl 6 yrs old
diagnosed with JIS 20* on March 2014
08/01/2015 thoracic 25 degrees
05/02/2015 Boston-Cheneau 18 hours
28/02/2015 X-ray with brace closed to 0*
next scheduled x-ray w/o brace will be in 6 month

Improvent on JIS still go on

Hi Poka1

Thank you for your reply. I just see it now because i was not checking the website since nobody was not giving any suggestion.
Last week we performed the x-ray which is one year after the last one. The doctor in Greece told us that till 7 years girls grow up fast and we had to perform an x-ray every 6 years. After 7 years the growth slow down and the x-ray should be taken every year.

This time our daughter stayed 50 hours OOB(out of brace),performed an X-RAY, there was great improvement, 6 degree without brace.

Replying to your questions,
- 49 OOB means before performing the x-ray she didn't wear brace for 48 hours. Yes, out of brace it was 13*. Yes, i attached it and i will attach even the x-ray taken this year.
- there is not any good orthopedic here that have experience on scoliosis. We don't have even orthotist.
- our doctor in Athens said that except brace it is surgery as well but we will speak for that if the situation will precipitate.

How is your daughter? I suppose it should be easier for your daughter since she is done with the growing, i mean she is not growing as before.

Cheers.

06/07/2016 x-RAY taken 50 hours OOB, thoracic 6*, :-))
next scheduled x-ray w/o brace will be in on 1year.
In Septmenber we will make a new brace.
Height: 134cm
Weight:26.5kg

Yes I misunderstood. Your daughter seems to be responding to the brace or is improving on her own even though she is wearing a brace. There is a child mentioned on this group who has a similar JIS curve as your daughter's and the curve is resolving on its own... no brace and no physical therapy.

I have two daughters. One was fused in 2008 and the other in 2009. They have normal lives and are in college.

Sharon, mother of identical twin girls with scoliosis

No island of sanity.

Question: What do you call alternative medicine that works?Answer: Medicine