Magical measurements

Lucia is due some new compression garments – she is currently down to her last pair and they are just about hanging in there. I am turning into quite the little seamstress as I have had to repair numerous holes in the heels where the seams have split as well elsewhere to try and prolong their life until we get some new pairs.

To be honest we have had a few difficulties in getting the new ones sorted but hopefully we have got the issues ironed out and some new pairs should be getting made and sent to us as I type!

So this brings us on to a little update on Lucia’s latest measurements. And they are wonderful! It has been over four months since the last measurements were taken and although most of them have gone up slightly (obviously due to her growth), the difference between her left leg and right leg has decreased! In fact, there is less than a centimetre of difference in some of the measurements! You would be hard pushed to see any real difference in her legs which is amazing.

Her little feet are also doing great. Her right does still measure a good bit bigger than her left but the most important thing is that her lymphoedema is in great shape – lovely and soft which is the way it should be.

It is great getting these measurements done every few months – obviously they are essential for us to get her garments made, but it is also a great way for us to see exactly how well she is doing and that the combination of Lymphatic Drainage that we carry out daily, the compression, walking, running, trampolining, swimming and just overall being a toddler is clearly working well for her.

Now we just have to wait for the new garments to arrive. Fingers crossed it won’t be too long.

The combination of appropriate compression and appropriate exercise produces amazing results. I encourage my daughter to wear her compression and ask for more stockings if they become too damaged. Her compression stockings are crucial in managing her lymphoedema. She has had to go back to wearing different sized school shoes. She is awaiting nail surgery for an ingrowing toe nail. Local Podiatry, GP and Lymphoedema services are being very supportive.

Hi Christina, sounds like you are going through a stressful time with your daughter’s lymphoedema but am happy you have coordinated care working for you. It is vital that we have this combination of services on hand as and when needed so I am delighted this is happening for you. I can only imagine how tough this must be for a teenager and for you too. I hope you get her toe sorted and compression keeps doing its job.xx

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Hello and welcome to Little Miss Lucia’s Lymphoedema Life blog! Lucia is my beautiful daughter, born on 12/03/12 with all ten fingers and all ten toes. However, her 10 perfect toes were puffy, as were her feet and legs. After months of tests and hospital appointments she was finally diagnosed with Primary Lymphoedema. Read More