1) Easy to recognise for patients and doctors to address patients
2) Clear needs with regard to:
– Reducing the delay in diagnosing the disease;
– Improving awareness for the disease among caregivers (GPs, school doctors, general public);
– Reducing care gaps/lost-to-follow up during the transition phase from pediatric to adult care;
– Improving the quality of family counseling;
– Reducing redundant tests/increasing the use of relevant tests for the disease;
– Improving medical knowledge by shared experience, and clinical trials.

Rare Multisystemic Vascular Diseases are :

Vascular diseases, including rare, low prevalence and complex disorders that affect different types and sizes of vessels, namely:

Follow us on twitter

Like Us On Facebook

4 days ago

The first Joint Call for European Joint Programme on rare Diseases (EJP-RD) opens today: Read about it here: https://vascern.eu/home/eu-calls/ and take a look at the EJP website to learn more about this important programme that has been established to further help in coordinating the research efforts of European, Associated and non-European countries in the field of rare diseases: http://www.ejprarediseases.org/ ... See more