Musings from the mundane day to day life of a mom of 9 to more serious ponderings of the day.

Tuesday, September 25, 2007

update on the appt

Whew ... I feel like i need major decompressions after that. We have a multifaceted plan beginning to take shape. Much to my husbands dismay, we really dont know anything new or concrete yet. Gideon is behind developmentally(already knew that), hes presenting at about a 3 month leval. So roughly 2.5 months behind. That in itself doesnt tell us much.

He has mixed muscle tone, some of where it was low before isnt anymore, so thats good too. So the doctor wants us to start doing therapy with the school systems birth thru 3 program, as well as start physical therapy with a pediatric therapist. She had noticed that although his hands arent in fists so much anymore, he still keeps his thumbs curled in.

On top of all that, she is ordering a brain MRI(which he will have to be sedated for), as well as upping cereal to twice a day(with breastmilk or formula), trying to see how he eats breastmilk from a bottle. She wants to see if he eats it more vigurously or if its the same , suck well for 5 min then minimum interest in eating the rest.

At the same time they do the brain mri, they will also draw bloodwork, to check his thyroid, also going to do another chromosome test. The one he had as a newborn only catches big stuff, so now that hes older they can check for more things. In addition to that, she ordered a swallow study to make sure he doesnt have any issues there and recommended the primary doc put him on reflux meds, to see if that will help.

Lots of stuff to process thru, nothing is scheduled yet and all we really seem to have are more questions now.