Family Life

WELCOME TO JOSEPH’S GOAL

Joseph Kendrick is nine years old and has NKH, (Non-Ketotic Hyperglycinemia), a very rare life-limiting genetic disorder that severely affects his development.

Joseph's Goal is a charity set up to increase awareness of NKH and to raise funds for research.

Parents Paul and Emma say '' Joe has shown us he wants to fight all the way, and we are determined to fight on his behalf to create awareness of this devastating condition, find better treatments for him and other children with NKH, and, hopefully find a cure."

At the UK NKH Conference held at the Hilton Beetham Tower in Manchester, the world’s top NKH researchers, Dr Nick Greene of UCL, Dr Johan van Hove of Colorado University, and Dr Kasturi Haldar of Notre Dame University, Chicago, were all able to report breakthroughs in gene therapy and chaperone therapy, with real hope of [...]

JOSEPH'S GOAL IS SUPPORTED BY:

WWW.JOSEPHSGOAL.ORG

Joseph's Goal is a registered charity in England and Wales number 1151548.

We exist to raise funds and awareness into NKH (Non-Ketotic Hyperglycinemia), which is so rare, and as a result so little research has been undertaken, literally every penny raised can and will make a real difference.