Caleb Joseph Regenski Memorial Foundation2015-06-09T18:58:33Zhttp://www.cjrmemorialfund.org/feed/atom/WordPressDDRight2011http://www.cjrmemorialfund.org/?p=3032014-01-22T14:06:33Z2014-01-22T14:06:33ZCory Perry is being treated in one of the best hospitals in Dansville (Geisinger). This is going to be a long road expected to be a year of traveling 2 hours away. His parents could use the extra support. This hit a little closer to home since Cory’s dad Chris and I went to college at... Read More >

]]>Cory Perry is being treated in one of the best hospitals in Dansville (Geisinger). This is going to be a long road expected to be a year of traveling 2 hours away. His parents could use the extra support. This hit a little closer to home since Cory’s dad Chris and I went to college at Penn State together so we were happy to be able to assist.

– See more at: http://www.youcaring.com/medical-fundraiser/help-cory-beat-cancer-/122576#sthash.0rq0ihdQ.dpuf

]]>0DDRight2011http://www.cjrmemorialfund.org/?p=3002014-01-22T13:15:49Z2014-01-22T13:15:49ZApril M. Vest recently requested assistance from the CJR Memorial Foundation in December of 2014. Her son Cort suffers from cerebral palsy, seizures, asthma, and contracture of joint. Cort had surgery on December 27, 2013 for the contracture of joint which left him in a full body cast. Due to his medical condition, April had... Read More >

]]>April M. Vest recently requested assistance from the CJR Memorial Foundation in December of 2014. Her son Cort suffers from cerebral palsy, seizures, asthma, and contracture of joint. Cort had surgery on December 27, 2013 for the contracture of joint which left him in a full body cast. Due to his medical condition, April had to stay with him at all times. Ms. Vest is a single mother of three children and because she has to stay at home with Cort she is unable to work. When she contacted us her electric bill was well behind and had just been turned off. I am happy to say we were able to pay her electric bill of $620.30 and get her power turned back on.

]]>0DDRight2011http://www.cjrmemorialfund.org/?p=2812013-06-22T17:16:02Z2013-06-22T17:13:39Z The Ronald McDonald House program provides a “home-away-from-home” for families so they can stay close by their hospitalized child at little or no cost. Once again we sponsored a room for the year at the Ronald McDonald House in Caleb’s memory.

]]>0DDRight2011http://www.cjrmemorialfund.org/?p=2792013-06-22T17:14:12Z2013-06-19T13:43:25ZThis year we were able to Donate $10,000 to The Children’s Hospital of Philadelphia in honor of Caleb. Those funds will go towards brain cancer research. There they continue to discover new methods of treatment for many types of cancer. Researchers are closer and closer to finding a cure. 

]]>This year we were able to Donate $10,000 to The Children’s Hospital of Philadelphia in honor of Caleb. Those funds will go towards brain cancer research. There they continue to discover new methods of treatment for many types of cancer. Researchers are closer and closer to finding a cure.

]]>0DDRight2011http://www.cjrmemorialfund.org/?p=1132012-06-23T19:50:17Z2012-06-23T19:50:17ZSkylar’s mother gave birth to twins prematurely at 25 weeks. One of her daughters , Rylee, passed away from complications of chronic lung disease at 2 months of age. Her sister, Skylar, survived after 104 days in the NICU and 2 subsequent hospitalizations. Skylar is now 3 1/2 years old and is medically involved. She... Read More >

]]>Skylar’s mother gave birth to twins prematurely at 25 weeks. One of her daughters , Rylee, passed away from complications of chronic lung disease at 2 months of age. Her sister, Skylar, survived after 104 days in the NICU and 2 subsequent hospitalizations. Skylar is now 3 1/2 years old and is medically involved. She has had 6 hospitalizations and 9 different surgeries/procedures. Skylar is deaf and has received a cochlear palsy, chronic lung disease, failure to thrive, developmental delays, and pervasive developmental delay. She is currently on 12 different medications and sees 12 different specialists. Also, she receives intensive therapies. Some of her therapies are received at a special Early Intervention Pre School that deals with special needs children. Other therapies are received out of town at Good Shephard Rehab Hospital in Bethleham, PA. Lastly, Skylar has many different types of assistive devices to help her including a Kid Walk gait trainer, a Lite Gait trainer, a Cuddlebug seating system, a Manatee bath seat, a Flamingo potty seat, a Traveler Plus car seat, a SPIO(Stabilizing Pressure Input Orthosis), and leg orthotics.

Due to the extensive stay in the NICU, as well as the delicate state in which Skylar came home, I needed to take over a year off from my job as a teacher. The money I lost in pay, aliong with the amount of money I paid for COBRA, and the expense of Rylee’s burial left me in financial distress. Additionally, it is very expensive to travel back and forth to Bethleham for Skylar’s therapies. I am currently back to work, as I can’t afford to stay home. Skylar is cared for by a Bayada nurse in my absence, which is luckily funded by my medical insurance at this time. My husband is currently laid-off and is collecting minimal unemployment. My salary and my husband’s unemployment have been keeping us somewhat afloat, however we are still swimming in debt and have been carrying expenses from the last 3 ½ years.

]]>0DDRight2011http://www.cjrmemorialfund.org/?p=1112012-06-23T19:49:42Z2012-06-23T19:49:42ZThis story begins on Nov 6th 2010. Ava was a healthy and intelligent little girl. She had turned 4 less than a month before. She had gone to her yearly check up a few weeks before and everything was fine. The day of the 6 th Ava had complained of a headache and dizziness and... Read More >

]]>This story begins on Nov 6th 2010. Ava was a healthy and intelligent little girl. She had turned 4 less than a month before. She had gone to her yearly check up a few weeks before and everything was fine. The day of the 6 th Ava had complained of a headache and dizziness and her pediatrician had said perhaps it was vertigo from an ear infection. At 2 am on the 7th Ava started to mumble, whine and throw up. She was touching the side of her head and shortly after she passed out her eyes rolling back. We thought she was having a seizure so we called 911 and we realized very quickly something was terribly wrong. She was entubated and the ER doctors and nurses surrounded her and worked very hard to stabilize her, and finally they came to tell us that she had a hemorrhage and they could see a tumor in her brain. They airlifted her to CHOP and there they gave us the worst news of all. IT was inoperable, and in a very delicate spot (the brain stem) they said nothing could be done. The prognosis was bad but the hemorrhage was the biggest thread at the time, they did not know if she could make it 24 hours. A few days later Ava started breathing on her own and was taken out of the PICU and slowly Ava came out of the coma after weeks. She started recovering her movement on the left side, but she was paralyzed in the right side of her body. She started making sounds and saying “ma”. In the past year, Ava has gone back to the old Ava; she is walking with assistance, speaking clearly and playing. In July we had a setback when she relapsed and her tumor grew 20 percent in one month. At the time they told us to go home “and get ready” we never lost hope and prayed very hard and WE witnessed our second miracle, with the help of our mighty King her tumor shrunk without treatment, 2 weeks later. Since then she was put on an experimental drug that kept her tumor stable (or perhaps it wasn’t the drug at all) and in NOV the MRI showed shrinkage. Praise GOD! At 13 months of diagnoses and having beat all the odds Ava is still going strong. If you are a parent of child with DIPG, our humblest advice is turn to GOD. Put your trust in HIM not the DRs. He is the only one that CAN, and he will. This is not his will or a lesson. He loves you and your child and he will deliver you.

$1,000 Donated to Ava’s family to help with the ongoing cost of copays, treatments and other associated costs.