On a facebook page for people with SCI there have been 2 people lately talking about exosome injections from stem cell center of NJ. Both claim to have regained movement along with reduced nerve pain and spasms. Both have incomplete injuries but had more recovery within days and weeks of their $11,000 injections.

I'm also very curious. I wonder how severe the cured nerve pain was. I know some paras who call mild parasthesia nerve pain...

06-01-2018, 04:46 AM

Mize

I will say this, one of the patients who used that clinic said they also injected his penis which is utterly absurd since nothing about sci-induced ED that is in the penis. Scam alert!

Correction... That was stem cells in Florida.

06-01-2018, 08:49 AM

Wills77

Quote:

Originally Posted by Mize

I will say this, one of the patients who used that clinic said they also injected his penis which is utterly absurd since nothing about sci-induced ED that is in the penis. Scam alert!

Correction... That was stem cells in Florida.

Haha 1 of the patients I mentioned is almost bald uptop and also had some injected into his head. He said his hair starting to come in thicker.

06-01-2018, 08:56 AM

tomsonite

I don't have experience with this place but here's my take...

From the web site:
-"The most superior combination of therapies is the use of stem cells with additional exosomes. This optimal combination is referred to as Clever Cells?."
-"The myriad of conditions that can be helped with stem cell therapy is almost limitless, because it is encouraging the body to regenerate healthy tissue and heal."
Clever Cells? Sounds like clever advertising to me.
As for the second quote - these guys are claiming they can treat anything with the same one or two magic bullets. Human biology does not work that way. Something that could heal cartilage after an ACL tear is not going to be able to re-organize synapses in a person with autism, which is also not what would allow healing of spinal tissue at the site of the SCI.

Lastly, in the video where the doctor talks about stem cells & regenerative therapies right on the home page, he states, at around the 16 minute mark,
"One of the things that happens, by the way, with the microglia, is you may see activated microglia, M1s, far away from the incident injury...so that may be one of the reasons that you develop neuropathic pain after these types of injuries."
I stopped the video right there. That is a gross oversimplification of why neuropathic pain occurs and is very misleading. He either doesn't know was he's talking about, or was purposefully presenting a narrow view of what neuropathic pain is in order to make sure it seemed like the service he was providing could treat what he is claiming is the main cause of neuropathic pain.

Lastly, the majority of scientific articles they provide are review articles outlining theoretical framework for use of stem cells, or single case studies. This is a red flag.

I can't comment on the two people who claim to have had positive gains from this place - if they are indeed real gains, I'm happy for them. But paying $$ out of pocket for treatments at a place like this seems risky to me .

06-01-2018, 08:58 AM

tomsonite

Quote:

Originally Posted by Wills77

Haha 1 of the patients I mentioned is almost bald uptop and also had some injected into his head. He said his hair starting to come in thicker.

You posted this comment while I was writing mine. I don't believe for one second that the same thing that can improve function and neuropathic pain can also re-grow hair. Living tissues just don't work like that.

*DISCLAIMER: The use of stem cells or stem cell rich tissues as well as the mobilization of stem cells by any means, e.g., pharmaceutical, mechanical or herbal-nutrient is not FDA approved to combat aging or to prevent, treat, cure or mitigate any disease or medical condition mentioned, cited or described in any document or article on this website. This website and the information featured, showcased or otherwise appearing on it is not to be used as a substitute for medical advice, diagnosis or treatment of any health condition or problem. Those who visit this web site should not rely on information provided on it for their own health problems. Any questions regarding your own health should be addressed to your physician or other duly licensed healthcare provider. This website makes no guarantees, warranties or express or implied representations whatsoever with regard to the accuracy, completeness, timeliness, comparative or controversial nature, or usefulness of any information contained or referenced on this Web site. This website and its owners and operators do not assume any risk whatsoever for your use of this website or the information posted herein. Health-related information and opinions change frequently and therefore information contained on this Website may be outdated, incomplete or incorrect. All statements made about products, drugs and such on this website have not been evaluated by the Food and Drug Administration (FDA). In addition, any testimonials appearing on this website are based on the experiences of a few people and you are not likely to have similar results. Use of this Website does not create an expressed or implied professional relationship.

*DISCLAIMER: The use of stem cells or stem cell rich tissues as well as the mobilization of stem cells by any means, e.g., pharmaceutical, mechanical or herbal-nutrient is not FDA approved to combat aging or to prevent, treat, cure or mitigate any disease or medical condition mentioned, cited or described in any document or article on this website. This website and the information featured, showcased or otherwise appearing on it is not to be used as a substitute for medical advice, diagnosis or treatment of any health condition or problem. Those who visit this web site should not rely on information provided on it for their own health problems. Any questions regarding your own health should be addressed to your physician or other duly licensed healthcare provider. This website makes no guarantees, warranties or express or implied representations whatsoever with regard to the accuracy, completeness, timeliness, comparative or controversial nature, or usefulness of any information contained or referenced on this Web site. This website and its owners and operators do not assume any risk whatsoever for your use of this website or the information posted herein. Health-related information and opinions change frequently and therefore information contained on this Website may be outdated, incomplete or incorrect. All statements made about products, drugs and such on this website have not been evaluated by the Food and Drug Administration (FDA). In addition, any testimonials appearing on this website are based on the experiences of a few people and you are not likely to have similar results. Use of this Website does not create an expressed or implied professional relationship.

WOW! :banghead:

06-01-2018, 11:08 AM

GRAMMY

Quote:

Originally Posted by Wills77

Haha 1 of the patients I mentioned is almost bald uptop and also had some injected into his head. He said his hair starting to come in thicker.

That's the mark of a shill selling magic potion X for the hucksters. :rotfl::rotfl:

06-01-2018, 02:37 PM

Tyran21

Curious, does the government have no control of these stem-cell centers opening business with no valid medical proof their treatments works or not? Ah well, read the Right to Try post. Guess I found the answer.

06-01-2018, 03:27 PM

GRAMMY

Quote:

Originally Posted by Mize

I will say this, one of the patients who used that clinic said they also injected his penis which is utterly absurd since nothing about sci-induced ED that is in the penis. Scam alert!

Correction... That was stem cells in Florida.

So New Jersey incomplete SCI can get fixed in a couple days and have their heads injected for baldness while they're there and Florida takes care of SCI nerve pain and penis injections for ED since that quit working.... One would think they'd train their shills a bit better and avoid the "clever cell" terminology. I mean, how many people (marks) would actually give these people that kind of money without a second thought or maybe reading something other than the deceptive advertising for such a serious CNS injury? People do check on things just a little bit, don't they?

06-01-2018, 03:41 PM

#LHB#

Quote:

Originally Posted by GRAMMY

So New Jersey incomplete SCI can get fixed in a couple days and have their heads injected for baldness while they're there and Florida takes care of SCI nerve pain and penis injections for ED since that quit working.... One would think they'd train their shills a bit better and avoid the "clever cell" terminology. I mean, how many people (marks) would actually give these people that kind of money without a second thought or maybe reading something other than the deceptive advertising for such a serious CNS injury? People do check on things just a little bit, don't they?

The answer to the last part is unfortunately a big fat,nnoooooooooo.

06-01-2018, 07:25 PM

Mize

GRAMMY, we are fortunate to have your sobering presence here. I'm a trained scientist and even I get so desperate I start to think maybe just maybe... Thank you.

06-01-2018, 07:40 PM

lunasicc42

I am in florida... And honestly I can't wait to go and get me some of them there peener injections. Lol

06-01-2018, 07:42 PM

lunasicc42

omw

06-02-2018, 06:33 AM

GRAMMY

Quote:

Originally Posted by Mize

GRAMMY, we are fortunate to have your sobering presence here. I'm a trained scientist and even I get so desperate I start to think maybe just maybe... Thank you.

You're most welcomed Mize. I do believe we'll make it to a place where valuable and viable treatments will become an option for us through rigorous testing, peer reviewed results and trials. (They will be the result of contributions made by dedicated scientists and relentless advocates throughout the decades along with steady hands guiding biotech companies). Along the way, there will always be failures, disappointment and snake oil sold. To me, it's important to learn, know and share the difference between our two options. It's not always easy to cut the wheat from the chaff, but we're getting there.

06-02-2018, 07:10 AM

nrf

Quote:

Originally Posted by Tyran21

Curious, does the government have no control of these stem-cell centers opening business with no valid medical proof their treatments works or not? Ah well, read the Right to Try post. Guess I found the answer.

The future in medicine is clinics where we can get a shot of Stem Cells and three joints and a week later all of our health problems will evaporate! Marijuana Stem Stores!

06-02-2018, 07:48 AM

GRAMMY

Quote:

Originally Posted by nrf

The future in medicine is clinics where we can get a shot of Stem Cells and three joints and a week later all of our health problems will evaporate! Marijuana Stem Stores!

Future=100 years. :laughabv: But it's a thought!

01-28-2019, 11:24 PM

shitrock4

Quote:

Originally Posted by GRAMMY

You're most welcomed Mize. I do believe we'll make it to a place where valuable and viable treatments will become an option for us through rigorous testing, peer reviewed results and trials. (They will be the result of contributions made by dedicated scientists and relentless advocates throughout the decades along with steady hands guiding biotech companies). Along the way, there will always be failures, disappointment and snake oil sold. To me, it's important to learn, know and share the difference between our two options. It's not always easy to cut the wheat from the chaff, but we're getting there.

I have looked into this process aswell and have sent them my bloodwork and Xrays Mras, to see what Dr. Speil has to say, I have talked to about 7 people through Facebook that have done this procedure with positive results, they all have nothing but good things to say about the proccess and only one older (60s) lady that has done this procedure with not to much results, tho she was still pleased with the service. care to elaborate anything about this I should be looking into?

I have seen this ad aswell, tho I have look up exosome trials on clinical trials, it shows very little results as it otherwise states in the link. Even if if this concept is not yet proven who says it doesn’t help? Sure seemed to help all the folks I’ve talked to.

03-14-2019, 09:42 AM

RyanJ

I just met someone who has an sci and had exosome injections done somewhere in California. Will try to find out more info on the location. Apparently he says that he has gained quite a lot of function. He was previously on a motorized wheelchair and is now using a manual and has had a great reduction in neuropathy. Does anyone here have any experience with exosome injections. Lately there has been alot of positive articles on pubmed relating exosomes to spinal cord injury.

03-14-2019, 12:27 PM

GRAMMY

Quote:

Originally Posted by Mize

I will say this, one of the patients who used that clinic said they also injected his penis which is utterly absurd since nothing about sci-induced ED that is in the penis. Scam alert!