Imagine you've been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do?
My name is Avery Lynn Canahuati, I'm almost 5 months old, and this has become my reality. But before I die, there's a few things I'd like to accomplish...this is my bucket list and my story.
SHARE IT & HELP ME TELL THE WORLD ABOUT SMA!

Saturday, March 23, 2013

Families of SMA and Nationwide Children's hospital have agreed to a 3-year cooperative agreement in the amount of $3,752,462 to help further fund pre-clinical drug development of Dr. Brian Kaspar's Gene Therapy program.

Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!

Saturday, March 9, 2013

Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!

After Avery's diagnosis, Families of SMA sent her a care package that included many amazing things to help us get Avery around comfortably and keep her entertained. Items from FSMA pictured w/Avery include her radio flyer wagon which allowed her to breathe comfortably while we took her on walks, a lightweight cat ball which unlike other toys, Avery was able to grip and lift, and her pinwheel which she wouldn't take her eyes off of. You can help Families of SMA (Florida chapter) by buying this $10 Groupon:

Thank you as always for your continued love & support of Avery and all of her friends with SMA.

Don't forget to share Avery's story by following & forwarding her blog, following her on Twitter (AveryBucketList) and Like her on Facebook (Averys Bucket List)! The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!