Occipital Neuralgia - Has anyone had decompression sx, or excision of occipital nerves?

In Apr 2013 went for decompression sx, surgeon said due to damage of nerves he removed them all. The pain before surgery was tolerable. The pain now is excruciating at times. On fentanyl 100, vicoden as needed, Gabapentin, lyrica, and a depression med. Have very few good days. Need life back.

Responses (1)

Is occipital neuralgia the same as occipital migraines? That's what I have. But what has helped me tremendously are Botox injections and nerve block and trigger point injections. With both, the injections are on my forehead, the sides and back of my head, my neck and shoulders. Perhaps those can help you.

So very sorry to hear about your painful situation. You might try the botox again. The first time I got it, I had no change. The doctor raised it the next time and has raised it again since then. Then I got tremendous relief. You take care.

Oh, sorry, I misinterpreted your past comment. Yes, I think that a further try of the Botox could be helpful for you. Perhaps you need to find a different doctor who knows more since they didn't suggest getting more at a future visit. Or did you contact them at all with your lack of success? If not, call first and ask if the doctor could be willing to increase your dose based on your discussions with him or her. I believe that I now get about 275 units. Plus I get a substantial dose to unclench my toes (also caused by my stroke). So your body can well take the increased dose of Botox. Wish you the best.