Resource List

We provide this resource page as a courtesy to our members. While all attempts have been made to keep the information provided here accurate and up-to-date, please use your judgment when referring families to resources. NAPSW neither supports nor recommends these organizations. If you notice incorrect information, or have resource suggestions, please contact [email protected]. Resources that are non-profit, nationally relevant and in line with the mission of NAPSW will be considered. NAPSW Standards of Practice are shared, but are only able to be printed by active NAPSW members.

Adolescent Pregnancy

Adoption

Adoptive Families

Adoptive Families is an award-winning resource for parents-to-be navigating the adoption process and for parents raising children through adoption.www.adoptivefamilies.com

Child Welfare Information Giveaway

Child Welfare Information Gateway promotes the safety, permanency, and well-being of children, youth, and families by connecting child welfare, adoption, and related professionals as well as the public to information, resources, and tools covering topics on child welfare, child abuse and neglect, out-of-home care, adoption, and more.www.childwelfare.gov

National Council for Adoption

Passionately committed to the belief that every child deserves to thrive in a nurturing, permanent family, NCFA’s mission is to meet the diverse needs of children, birth parents, adopted individuals, adoptive families, and all those touched by adoption through global advocacy, education, research, legislative action, and collaboration.www.adoptioncouncil.org/resources/general

Tapestry Books

Adoption Books and Resourceswww.tapestrybooks.com

Bereavement/Grief and Loss

Compassionate Friends

Through a network of almost 700 chapters with locations in all 50 states, as well as Washington DC, Puerto Rico, and Guam, The Compassionate Friends has been providing support to bereaved families after the death of a child for four decades.www.compassionatefriends.org

Cuddle Cot

A cuddle cot is a cooling pad which can be inserted into any type of baby bed – from Moses baskets to carry-cots, prams to cots – to allow the families of babies who have passed away time to grieve. Further information is available via a browser search on the internet.

Journey of Hearts

Breastfeeding

International Breastmilk Project

IBMP is an international humanitarian aid organization, dedicated to providing life-giving donor milk to infants in emergent need.www.breastmilkproject.org

La Leche League International

Our Mission is to help mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.www.llli.org

Cancer

Pregnant With Cancer

Offers free support for women diagnosed with cancer while pregnant. We connect women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.www.pregnantwithcancer.org

Cerebral Palsy

Cerebral Palsy Guidance

Cerebral Palsy Guide

Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.www.cerebralpalsyguide.com

Cerebral Palsy Group

Provides free educational information and support to those who have been affected by cerebral palsy and other developmental disabilities.www.cerebralpalsygroup.com

Child Abuse/Neglect and Welfare

Child Welfare Information Gateway

Connects child welfare and related professionals to comprehensive information and resources to help protect children and strengthen families.www.childwelfare.gov

Child Welfare League of America

The oldest child welfare organization in the United States. The CWLA is the trusted authority for professionals who work with children and the only national organization with members from both public and private agencies, providing unique access and influence to all sectors of the children’s services field.www.cwla.org

Cord Blood

Cord Blood Banking

Our organization promotes awareness for current and future stem cell treatments, and we are committed to being the most comprehensive and up-to-date resource available for mothers and families considering cord blood.www.cordbloodbanking.com

Disability

Through the Looking Glass

A nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement.www.lookingglass.org

Domestic Violence

National Coalition Against Domestic Violence

The National Coalition Against Domestic Violence (NCADV) is the voice of victims and survivors. We are the catalyst for changing society to have zero tolerance for domestic violence. We do this by affecting public policy, increasing understanding of the impact of domestic violence, and providing programs and education that drive that change.www.ncadv.org

National Domestic Violence Hotline

At the National Domestic Violence Hotline, our highly trained expert advocates are available 24/7 to talk confidentially with anyone in the United States who is experiencing domestic violence, seeking resources or information, or questioning unhealthy aspects of their relationship. 1-800-799-SAFE (7233)www.thehotline.org

Ethics

Family Centered Care

Institute for Patient- and Family-Centered Care

IPFCC advances the understanding and practice of patient- and family-centered care. In partnership with patients, families, and health care professionals, IPFCC seeks to integrate these concepts into all aspects of health care.www.ipfcc.org

Better Together: Partnering with Families, equips hospital leaders with the rationale, tools, and support needed to change visiting policies. The tools are designed for hospitals that are just beginning to think about changing policies—and for hospitals that have already begun the process but can benefit from additional resources.www.ipfcc.org/bettertogether

Financial Assistance

Caiden’s Hope

At Caiden's Hope we strive to help families with the incurring fees associated with a NICU stay such as: parking, travel, and other expenses.www.caidenshope.org

singlemothersgrants.org

Directory of grants for single mothers. Listed here are financial assistance programs that help single mothers with rent, utility bills, child care, education, medication, housing, medical bills, and mortgage, among others.www.singlemothersgrants.org

Group B Strep

Group B Strep Association

The Group B Strep Association (GBSA) is a non-profit organization that was formed in June of 1990 by parents whose babies died from this devastating infection.www.groupbstrep.org

HIE

Hope for HIE

A resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).www.hopeforhie.org

HIV/AIDS

National Center for HIV/AIDS, Viral Hepatitis, STD, & TB Prevention

Maximizes public health and safety nationally and internationally through the elimination, prevention, and control of disease, disability, and death caused by HIV/AIDS, viral hepatitis, STDs and TB.www.cdc.gov/nchhstp

Hospice and Palliative Care

A Place to Remember

Uplifting support resources for those who have been touched by a crisis in pregnancy or the death of baby. www.aplacetoremember.com

Hydrocephalus

The Hydrocephalus Association

The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. They provide information as well as a support network to families impacted by hydrocephalus.

Infertility

Resolve: The National Infertility Association

A non-profit, charitable organization, who works to improve the lives of women and men living with infertilitywww.resolve.org

Your Fertility Friend

We help prospective patients understand what their options may be for in vitro fertilization. Browse our site resources, FAQ’s, and online tools to start your education on IVF.www.yourfertilityfriend.com

Legal

Family Law

Provides resources and state-by-state information for family law questionswww.findlaw.com

National Advocates for Pregnant Women

National Advocates for Pregnant Women (NAPW) is a non-profit organization that works to secure the human and civil rights, health and welfare of all people, focusing particularly on pregnant and parenting women, and those who are most likely to be targeted for state control and punishment - low income women, women of color, and drug-using women.www.advocatesforpregnantwomen.org

LGBTQ

The World Professional Association for Transgender Health

A non-profit, interdisciplinary professional and educational organization devoted to transgender health.www.wpath.org

TransActive Gender Center

TransActive Gender Center provides a holistic range of services and expertise to empower transgender and gender diverse children, youth and their families in living healthy lives, free of discrimination.www.transactiveonline.org

Trans Birth

Trans Birth is a directory created to connect trans* and gender non-conforming people and their families to midwives, OBGYNs, and doulas who provide welcoming care to our communities. www.transbirth.org

ICATH:Informed Consent for Access toTrans Health

ICATH promotes the use of informed consent as a recognized standard of care to support the ultimate well-being and autonomy for people who are transgender, intersex, and gender non-conforming.www.icath.org

Maternal Mental Health

Massachusetts General Hospital Center for Women’s Mental Health

This website provides a range of current information including discussion of new research findings in women’s mental health and how such investigations inform day-to-day clinical practice.www.womensmentalhealth.org

PostpartumDepression.org

Postpartum Support International

Dedicated to helping women suffering from perinatal mood and anxiety disorders, including postpartum depression, the most common complication of childbirth.www.postpartum.net

Seleni Institute

The Seleni Institute is a nonprofit organization that was founded by Nitzia and George Logothetis in 2011 to destigmatize and transform mental health and wellness by addressing real-life issues that challenge the emotional health of women, men, and their families.www.seleni.org

Multiples

Multiples of America (aka the National Organization of Mother of Twins Clubs)

Mothers of Multiples (aka MOMS):

Search for local chapters as many exist

Necrotizing Enterocolitis (NEC)

NEC Society

The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC.www.necsociety.org

Neonatal Abstinence Syndrome (NAS)

This video provides an overview of Neonatal Abstinence Syndrome (NAS), which can result from opioid use during pregnancy. Sharing one mom’s experience of having an infant with NAS, this video offers mothers and providers an overview of the symptoms and treatment of NAS, including caring and comforting techniques for a baby experiencing withdrawal symptoms. This video was written and produced by the University Of Maryland Medical Center Department Of Psychiatry; Department of Obstetrics, Gynecology, and Reproductive Health Services; and the Department of Social Work. www.cffutures.org/resources/neonatal-abstinence-syndrome-video

NICU Information

NICU Now

Hand to Hold’s audio support series for parents who are in the NICU. Free podcast available to support families without leaving their baby’s bedside.www.handtohold.org/support/nicu-support/nicu-now-podcast

NICU PET: NICU Parent Education Resources

To help you and your NICU team talk to parents about their newborns’ conditions and treatments, Mallinckrodt Pharmaceuticals has developed these education resources.www.nicu-pet.com

Your NICU Baby

Your NICU Baby is a subscription-based, on-demand educational video library that parents can watch in the NICU and online at home.www.yournicubaby.com

NICU Parent Support

Graham's Foundation

Graham’s Foundation delivers support, advocacy and research to improve outcomes for preemies and their families.www.grahamsfoundation.org

Hand to Hold

A nonprofit organization which carefully matches seasoned parents of preemies (Helping Hands) with parents in need of support.www.handtohold.org

March of Dimes: Share Your Story

NICU Helping Hands

NICU Helping Hands developed their five key programs to meet the needs of families throughout their journey. These programs include Project NICU, One-on-One Mentoring Program, Family Assistance Program, NICU Mom Connect, Angel Gown® Program.www.nicuhelpinghands.org

Preemie Parent Alliance

Preemie Parent Alliance is a network of organizations offering support to families of premature infants. To ensure best outcomes for preemie families, the Preemie Parent Alliance is dedicated to representing the needs and best interests of preemie families in all facets of healthcare policy, care guidelines, advocacy, education and family support.www.preemieparentalliance.org

Support 4 NICU Parents

Developed by the National Perinatal Association as a resource for parents and professionals. It is a resource for comprehensive NICU family support. www.support4nicuparents.org

Zoe Rose Memorial Foundation

Provides emotional support, educational resources, and awareness focused events, which inspire hope in parents of preemies while in the NICU, post discharge and for those who have suffered a pregnancy or infant loss.www.zoerose.org

NICU Apps

Obstetrics

Pregnancy and Pregnancy Termination

A Heartbreaking Choice

Supports women who have made the “Heartbreaking Choice” to terminate a much wanted pregnancy. For those who have undergone a pregnancy termination due to a poor prenatal diagnosis, problems with their own health, or for the health of another fetus (selective reduction).www.aheartbreakingchoice.com

Planned Parenthood

Planned Parenthood is one of the nation’s leading providers of high-quality, affordable health care, and the nation’s largest provider of sex education.www.plannedparenthood.org

National Advocates for Pregnant Women

Works to secure the human and civil rights, health and welfare of all women, focusing particularly on pregnant and parenting women, and those who are most vulnerable to state control and punishment – low income women, women of color, and drug-using women.www.advocatesforpregnantwomen.org

Prematurity

March of Dimes

Helps moms have full-term pregnancies and researches the problems that threaten the health of babies.www.marchofdimes.com

Premature Baby

Support preemie parents by providing information on prematurity and preemie care.www.prematurity.org

Perinatal Professional Association

National Perinatal Association Professionals

NPA gives voice to the needs of pregnant women, infants, their families and their healthcare providers by bringing together stakeholders that collectively can have the greatest positive impact on perinatal care in the United States.www.nationalperinatal.org

Safe Sleep

Baby Box University

An educational service provided by The Baby Box Co. in coordination with committed medical professionals, maternal health advocates and child development specialists for the purposes of reducing infant mortality and empowering parentswww.babyboxuniversity.com

Social Security Administration/SSI

This booklet is for the parents, caregivers, or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments.www.ssa.gov/pubs/EN-05-10026.pdf

Social Work Guide

Social Work Degrees

A comprehensive resource for exploring colleges and universities offering a degree in Social Work. All degree levels are covered.www.socialworkdegrees.org

The Social Work Podcast

Provides information on all things social work, including direct practice (both clinical and community organizing), research, policy, education… and everything in between.socialworkpodcast.blogspot.com

University of Buffalo Social Work Podcast

inSocialWork® is the podcast series of the University at Buffalo School of Social Work. The purpose of this series is to engage practitioners and researchers in lifelong learning and to promote research to practice and practice to research. inSocialWork® features conversations with prominent social work professionals, interviews with cutting-edge researchers, and information on emerging trends and best practices in the field of social workwww.insocialwork.org

MSW Guide

Your source for information on Master’s in Social Work programs, social work licensure, career paths as a social worker, and more.www.mswguide.org

Spina Bifida

Spina Bifida Association

Serves adults and children who live with the challenges of Spina Bifida by providing education, advocacy, research, and service.www.sbaa.org

Substance Use

Alcoholics Anonymous

Alcoholics Anonymous is an international mutual aid fellowship founded in 1935 by Bill Wilson and Dr. Bob Smith in Akron, Ohio. AA's stated "primary purpose" is to help alcoholics "stay sober and help other alcoholics achieve sobriety".www.aa.org

Narcotics Anonymous

Narcotics Anonymous is a global, community-based organization with a multilingual and multicultural membership. NA was founded in 1953, and members hold nearly 67,000 meetings weekly in 139 countries today.www.na.org

National Organization on Fetal Alcohol Syndrome

NOFAS prevents alcohol use during pregnancy and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs).www.nofas.org

Resolve: The National Infertility Association

Trisomy

National Down Syndrome Society

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.www.ndss.org

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)

SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.www.trisomy.org

Women's Health

Pelvic Rehab

Pelvicrehab.com is a directory for patients searching for pelvic rehabilitation practitioners.

Zika Virus

Zika Care Connect (ZCC)

The Centers for Disease Control and Prevention (CDC), in collaboration with the March of Dimes, is working to establish a specialty provider network, known as Zika Care Connect (ZCC), to provide this servicewww.zikacareconnect.org