Today went well but tonight is not so well.

Saturday, January 19, 2013

DH s getting most frustrated with his BiPap machine. He cannot lie down on his back and he cannot sit up reclining because the beard is making the Mask leak. He was so upset he was shaking.
I too felt like I was shaking inside, I just had to calm him down but it took a long
time.
I just wanted to hug him but I knew I would hurt him.
I will be glad when Monday morning is here I have to check on the coumadin. He keeps getting dizzy today so I know he is anxious and I know I am but we are not communicating on it. I have o go to bed Goodnight,. Pat in Maine.

Just a humble suggestion: Not knowing where it is leaking from, is it possible to insert a piece of batting or p[illow fiberfill as a snake shape all around the masks, kind of like double sticky taped to it, thus amking a seal around it temporarily until you can contact the doc/Rt?? Take some batting, or a piece of flannel or whatever fits with your great seamstress eye, roll it like a little snake into a circle, sticky tape the underside of it to the perimeter of the mask,thus maybe filling in the gaps of the bearded parts of his face? just a suggestion...

is there no way to adjust the mask on that??? you should call the place you get your supplies from and ask for a different kind of mask they have all kinds of new ones that work much better than the older models..i know this becausewe couldn't get a mask that fit and worked snaller head i guess and i was a month trading masks to get a really great fit for surethe lady maryloves and hugs

Pray you got a good night's sleep and this morning things are looking better. Fred getting frustrated and unnerved will affect you. I vote with talking to the doctor about a temporary solution for the breathing apparatus, unless his shingles are not bothering him anymore and he can shave the beard. A gentle shoulder rub might communicate the same as a hug. Prayers & Hugs

Pat, sorry to hear you've had such a rough time. You sound so frustrated for you and Fred. Is there any other solution for the mask? Maybe the doctor would have one. Too much going on all at once. Praying you got a good nights sleep.

Let's face it-- women are tuffies!! We would get up and shave that second,but men always have other agendas. Hang in there -- it seems like people are hard to live with when they are sick and sometimes every little thing is just so aggravating. It's a delicate balance for everybody.

Same suggestion . . . maybe the beard could go. As for the difficulty positioning, did you get any literature from the hospital with tips about how to comfortably position in bed? I just remember getting that when I had my knee replaced. Of course the information would be different for your DH being that he had his hip.

Oh Pat, I feel for you. I'm sorry that you are gettinganxious and that DH is getting upset. Not getting agood night's sleep really makes for a lot of nervoustensiona nd anxiety. I am praying for both of you andwish you a great night's sleep.

It passes but it is miserable until it does. I remember with my knee replacement getting sciatica... nowhere comfortable to lie and yet I was lieing in bed most of the day... it was terrible. But it did eventually pass and sure motivated me to get up walking! I would certainly consider shaving the beard. Sleep is a priority.