The Joys of having CF

Tuesday, May 15, 2012

...Hello

Hello, well this is not the big update I promised, but I am going to try to have that done by the weekend. I've been busy trying to finish my senior year of high school. I will be done by the first week in June, which will be a whole year sooner than if I was still in public school. I am so excited. In the big update i'll talk about what i'm currently doing(school), my plans after, etc... I just wanted to say hello, and i am great, i'm currently on my 28 days of Tobi, and wow what a difference it makes. I was feeling good when I went on, but not now that i'm on i'm feeling great :)

Lastly,My local CF walk is on Saturday at a park close to my house. I am still looking for donations, I am only $80 away from my personal goal. I apologize if it seems like all i'm doing is asking for money but i'm really not. What I'm doing is asking to see if you would be interested in donating money to help me and all the other CFers out there to find a cure for Cystic Fibrosis. The money donated does NOT go to waste. It goes to the Cystic Fibrosis Foundation (CFF) to help with research to find a cure for CF. The CFF is a non-government funded program, and they need OUR help to raise money so we can continue to advance in research. It is because of all of us raising money that they've come out with such great medicines. So if you would be so kind to help me hit my fundraising goal for my CF walk please visit my fundraising site:http://www.cff.org/Great_Strides/PaigeSchreiber6672 It would mean so much to me and all the other CFers out there. Help us to create more tomorrows everyday. I do want to say 'Thank You' to all of you have donated so far. I greatly appreciate it as do all the other CFers.

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About Me

My name is Paige. I have Cystic Fibrosis. I am a fun loving, small town girl with big dreams...trying to live my life to the fullest. I am a Christian. My family is my priority. I was homeschooled since my freshman year of high school and graduated a year earlier at age 17-Senior 2012. I love anywhere with an ocean. My favorite color is Pink of course. I have a crazy love for food. I love to travel. I want to see the world. I enjoy spending time with my family & friends. In March 2011 I went on my Make~A~Wish trip to the most beautiful island in the world, Bora Bora. I have written a book called, Growing up with Cystic Fibrosis the first 13 years. It's about living with Cystic Fibrosis (an incurable illness). I wrote the book to help people. I have recently started to get involved with public speaking. I believe that my purpose in life is to help people, and to make a difference. I believe that God put me on this earth for a reason, and i'm not going to let him down.
Social Media sights: Instagram,Twitter, Snapchat & Poshmark: paigecf94

A Powerful Statement

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer