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Recently diagnosed with cniari malformation 1 @ 1 cm. Have had many symptoms ever since 2001 when I was involved in a plane crash. I was diagnosed with RA, bursitis, acid reflux and fibromyalgia in 2004, Bachetts Disease in 2006 and now Chiari malformation1. I've bee
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[More]n a busy girl for the past few years, huh? :) And all this before the age of 48! (can't wait to see what 50 has to offer!) I have spent the past week studying everything I can find and believe that many of my symptoms belong to the Chiaris more than anything else. Have had a brain MRI and neurophsyc exam so far. Have not heard a word from the neurologist yet...(my RA dr. emailed me the results of the MRI). I am assuming he will contact me to have a full spinal MRI this week.

"On the way to the hospital for the second and hopefully final chiari related surgery. Wish me luck! Have tried several times to catch up with you k, but know how much you've been struggling with! Hope things have calmed down some! M..."

"hi all!
it's been a rough few months, so i haven't been around much. two wks ago today, i fell down a flight of 14 stairs and messed my back up some more. there is an acute fracture at t-11 that goes straight thru the middle of the ve..."

Just a quick note to say hi! Hello,
in response to your question, the MRI does say that the right Cerebellar tonsil extends below the Foramen Magnum also listed as Low Lying Cerebellar Tonsils. The good thing is, there is no Syrinx or syringomyelia. I have already seen a Chiari Specialist and neurosurgeon Dr. Dan Heffez at the Wisconsin Chiari Center. I had other tests done at home to rule out other causes of my symtoms. I am just gathering all of my tests and exams to Dr. Heffez so hopefully they will procede with decompression surgery because these symptoms are HORRIBLE! Especially when standing up!!!!

Just a quick note to say hi! Also, I use to live in Ocean Pines before coming back to the DC area. I was suppose to go down to the shore yesterday, but have put off my trip till after taxes are done. My god-children 1st lived where youdo and now are in Gumboro. Maybe we can meet when I go down again or when I go down for the oldest godchild's graduation from high school?
I felt totally alone when living down there because there were no others that had ACM, let alone know about it.
Have a great week!
verdenango

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