2017 Nicholas Giving Tree- December 11, 2017- Over 40 families located in New England and though out the US donated items and various gift cards for our annual Nicholas Giving Tree holiday care packages. These packages were sent to 28 families, throughout the US, with children suffering from various types of Batten disease. While it does not cure the disease,

2017 Scientific Conference: Batten Disease Scientific Conference for November 29 and 30th, 2017 Bethesda, Maryland. OPTN, along with the support of other family foundations, BDSRA, Beyond Batten Disease Foundation and a several pharmaceutical companies funded the 4th scientific workshop. 57 leaders, researchers, and scientist throughout the world came together to