Tuesday, January 11, 2011

Horse's tail

Doctor's entourage just been, apparently my spinal column is just fine, well as fine as someone with lung mets etc can be. But and there is always a but, the cluster of nerves at the base of my spine, commonly called the Horse's tail has cancer deposits and that is what's causing the problems, so same difference really. Treatment will be 5 doses of radiotherapy to the place where my tail would be if I was a horse. Then I will start the sea squid aka yondelis so the fun begins. The physios will have a go at me tomorrow to get me on my feet again. It is hoped the radiotherapy will at least halt the paralysis in it's tracks and best case scenario turn me back to normal, if such I ever was. With a fair wind I should be out tomorrow or day after.

Sincere good wishes and hugs as you traverse this section of the process. I love that you corrected your apostrophe error-it is a pleasure to meet the Only Other Person Who Cares about the it’s/its applicability.

About Me

I am 62, retired from running my own events business. I have been married to Stewart for 43 years and have four fantastic children, Sam, Joe, Luke and Jess, four grandchildren, Harry and Danny and new twins, Max and Charlie; I also have two step-grandchildren, Hannah and Chelsea.
On 11 September 2009 I was told that the very rare leiomyosarcoma that was found in one of my veins in summer 2008, and removed, had metastasised and I now have sarcomas in my lungs. By April 2010 it had got to my liver and back to my leg. In January sarcoma nodules were found on the horse's tail, the bunch of nerves that come out of the base of my spine. Despite radiotherapy, the paralysis spread very quickly and I have no feeling at all from my hips down.
I will try to log what all this feels like in this blog and keep in touch with friends, family and fellow travellers along the way.