Global

We’ve heard from several of our partners that they will be attending this year’s Lysosomal Disease Network WORLD conference next month. Will you be there? If so, let us know! Please send us an email so we can try to make arrangements to meet. Fo...

Several years ago, our patient advocacy team convened a group of rare disease caregivers - the parents, partners, siblings and loved ones of people with rare diseases – to learn more about their daily challenges and needs. In doing this, we quickl...

To help inform and inspire, we are initiating a new video series called Advocate to Advocate. We will be regularly featuring brief video interviews with patient organization leaders around the word. Our goal is to share stories of how advocates star...

Recently, Genzyme Rare Community sent out an email survey to our patient advocacy organization subscribers. We wanted to know how we were doing. Is our content useful? What are we missing? Thank you to those who took that time to fill out the surv...

In the coming weeks, we will be unveiling the newly designed Genzyme Rare Community website. Along with the new look and feel will be greatly enhanced functionality such as social sharing through Facebook and Twitter. We’ve heard from patient grou...