Tag: Gastroenterology

As you likely already know, Gavin was scheduled for surgery at Akron Children’s Hospital yesterday. Everything went as planned but we ran into a problem. I summed everything up in the video below because it was easier to talk about it than try to explain in writing. I’ll quickly explain… Read more »

It’s been a really long and emotional day. I wanted to quickly let you know how testing went this morning at Akron Children’s Hospital. This was all in regards to the medically necessary procedures Gavin needs to have done on the 5th of June. We had been concerned about how… Read more »

I spoke last week about how Gavin is in need of an endoscopy and colonoscopy because of various potential health related problems in those areas. They needed to run labs to make sure that it would be safe for Gavin to have the procedures because Neutrophilia puts him at a… Read more »

We ended up not seeing the doctor we thought we were supposed to and while we were initially thrown off at first, we really like the new one.. There was a great deal of information but I’m going to make this as quick and concise as possible. Basically, there are… Read more »

Today is going to be one of the biggest days we’ve had in awhile, at least as far as Gavin and his health are concerned. Gavin finally gets back into Gastroenterology. We’ve finally come full circle and I’ll explain why. It’s been awhile since he’s been seen and that’s only… Read more »

I still haven’t heard from the doctor as to what time Emmett’s supposed to be seen in the morning. I’m supposed to call back if I don’t hear from them before 9 AM. This should be a simple appointment and likely resulting in a referral to Gastroenterology at Akron Children’s… Read more »

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Today’s Autism Poll

Autism Parents: How much sleep do you get each night?

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Varies...Diagnosed with severe narcolepsy so sleep schedule is nuts. Up for a couple of days sometimes. Sleep standing...9 stiches in lip, broken nose/concussion from another fall. By the grace of God, my 10 yr old daughter with autism (severe) finally decided she loves to go to bed!?!? Took some work and a lot of persistence! Think I developed PTSD from her sleep habits (15+/- mins at a time). Earlier ?/past•••life before autism/epilepsy/frustration/self harm/plain ole hard as hell at times?? Miss the hell out of it. However, would I go back to that time before my precious girl?? Absolutely not! Will I have questions for God when I meet Him face to face? At least 1... Why? Why did You do that to her?

My son still hasn't slept through the night as 4.5yrs (though we are making great progress after his OSA dx and treatment). We get up every 30 min to 2hrs typically and that usually amounts to a total of 4 hours for me and 6-8hrs for him.

Not enough for nearly 30 years. respite care is good, but I feel awkward leaving her.

First 10 yrs lucky if we slept 2 hrs. Then given prozac and has slept through the night (mostly) since then. 33 now he sleeps more since we had to add seizure medicine 3 yrs ago.