]]>By: Hunter Mariahhttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-6326836
Thu, 05 Mar 2015 23:05:48 +0000http://designmom.wpengine.com/?p=4211#comment-6326836You seriously have the cutest family! You’re story is inspirational! Thanks for showing that giving up isn’t an option and that even more love can come to the family when you work together to get through what you think is a detrimental trial. :)
]]>By: Mariahttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-450944
Tue, 02 Apr 2013 04:28:11 +0000http://designmom.wpengine.com/?p=4211#comment-450944Both my brother and sister have BBS. All I can tell you is to teach Lucy independence and allow her to live a normal life, this is easier said than done. My two siblings live in their own aparyment and both work, my brother has a seeing eye dog who is his biggest joy. Both are the happiest people I know, seriously, they are all smiles and laughter. It is hardwrenching to think of them crossing a busy street or taking public transportation, but that lifestyle allows them to never feel handicapped, just normal with a “cool” dog. Both are in their 40’s and doing great. Don’t fear for Lucy’s future she will be just fine. Big hug from my family to yours.
]]>By: katie presshttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-396286
Mon, 15 Oct 2012 01:52:51 +0000http://designmom.wpengine.com/?p=4211#comment-396286hi…..your blog is beautiful….i have a 6mnth old that was just diagnosed with bbs and as you would know i am going through all sorts of emotion.
The uncertainty gets to be the most…not knowing when everything with start popping up with her kidneys and eyesight.
how is lucy doing know? how old is she?
i would love to ask you a million questions only if ur okay with that
katie press
]]>By: beckyhttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-254808
Wed, 09 Mar 2011 02:22:06 +0000http://designmom.wpengine.com/?p=4211#comment-254808Your blog is beautiful. Thank you for sharing your journey. I have RP and agree, there are some amazing experiences in this journey as well as some times of grieving.
]]>By: Gracehttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-41339
Sat, 19 Jun 2010 13:05:10 +0000http://designmom.wpengine.com/?p=4211#comment-41339Thank you for sharing your story. I”m sure you have helped many other families that are grieving when they find out that something is ‘wrong’ with their child. I’m a Speech-Language Pathologist and often work with families that have a child with special needs in one form or other so i see some of the struggles firsthand. You have such a positive attitude and great motivation and that will help your little girl tremendously.
]]>By: Meleahttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-37243
Fri, 21 May 2010 06:49:54 +0000http://designmom.wpengine.com/?p=4211#comment-37243Thank you for sharing your family’s beautiful story. I agree with all your conclusions about the hidden blessings in these challenges. My husband and I have been blessed with 8 children…and have decided that really, we all have our “syndromes” –strengths and “handicaps” or delays…and they are all blessings. These heartaches and challenges can turn our hearts to God and each other in a different way than anything else, and I am truly grateful for them. As the years pass, you will also find that you and your children have an understanding, tolerance and empathy for the challenges of others’ that could be gained in no other way. Thank you for sharing, and reminding me:)
]]>By: Caddy Shaphttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-36502
Mon, 10 May 2010 06:50:45 +0000http://designmom.wpengine.com/?p=4211#comment-36502Lucy has vision beyond sight!… and so do you! :) The Lord works in mysterious ways to bless and help us grow. I’m sure this has been a great blessing for you amidst the great challenge of faith!
]]>By: Kate The Greathttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-36469
Mon, 10 May 2010 01:26:03 +0000http://designmom.wpengine.com/?p=4211#comment-36469I know how you feel, Shawni. Or more specifically, my parents know how you feel. I have Usher’s Syndrome, and the cure for the eyesight part of my genetic disorder is being funded by Foundation Fighting Blindness, too. I raised money through a VisionWalk last year as well.

I also worry fr my child. I don’t know whether he has the same disorder I do.

]]>By: Jillhttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-36409
Sun, 09 May 2010 05:02:43 +0000http://designmom.wpengine.com/?p=4211#comment-36409One of my favorite parts of mothering is hearing my children pray for one another. Thank you for sharing your story and Lucy’s story. It reminded me to be thankful for all my kids can do – and have done.
]]>By: Denise Metzgerhttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-36335
Sat, 08 May 2010 16:34:14 +0000http://designmom.wpengine.com/?p=4211#comment-36335So thankful that you shared your story for all of us who may take for granted the health and well being of our children. I Am a single , adoptive mom of 3 who were cocaine positive at birth and amazingly healthy and well! Sharing helps others when they least expect it.
]]>By: lynnehttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-35811
Fri, 07 May 2010 05:10:36 +0000http://designmom.wpengine.com/?p=4211#comment-35811What a moving story and what a beautiful little girl… (and I want to say how much I love Shawni and Linda’s book, A Mother’s Book of Secrets – )

Thanks, Shawni! You Eyre girls are amazing.

]]>By: Sarah @ Clover Lanehttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-35332
Thu, 06 May 2010 21:06:24 +0000http://designmom.wpengine.com/?p=4211#comment-35332I love Shawni’s blog…she is such an inspiration in the way she embraces motherhood..no matter what it brings her!
]]>By: Emilyhttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-34682
Thu, 06 May 2010 13:35:59 +0000http://designmom.wpengine.com/?p=4211#comment-34682You have a beautiful story. Your daughter is lovely. I don’t know your religion, but I wanted to share with you that in the Catholic faith, St. Lucy is the patron saint of blindness and those with eye troubles. The name Lucy means “light”.
Thank you for sharing your story and may God bless you and your family.
]]>By: Wendy @ The Shabby Nesthttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-34677
Thu, 06 May 2010 03:51:46 +0000http://designmom.wpengine.com/?p=4211#comment-34677I have known Shawni for many years….I have always been impressed by her spirit. She is an amazing mother, and the way she and her family have dealt with Lucy’s syndrome is inspirational to me.

I too have a dramatic “after-birth” story with my youngest son who came into this world seemingly perfect, but was diagnosed a few weeks after his birth with a liver defect called Alpha-1 Antitrypsin deficiency. This diagnosis led us to test our other 3 children…2 of which also have the disease. And so I echo what Shawni says, that something being “wrong” with your child can strengthen you and your family in ways you never knew possible.

Thank you for this post.

]]>By: abbyhttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-34675
Thu, 06 May 2010 00:45:46 +0000http://designmom.wpengine.com/?p=4211#comment-34675You are an amazing mom. I don’t need to “know” you to be able to tell you this. As a mother of two boys, I cried through your post. Thank you for sharing and reminding of us all there is to be grateful. Many blessings and healing to Lucy and your family.
]]>By: artfulifehttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-34674
Thu, 06 May 2010 00:00:19 +0000http://designmom.wpengine.com/?p=4211#comment-34674What a sweet story. We all want so much for our little ones. It is so hard when they have an illness or life altering condition & is so important to count our many blessings and be thankful for the good in our lives. Thanks for sharing your beautiful story.
]]>By: Meredithhttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-34668
Wed, 05 May 2010 20:33:50 +0000http://designmom.wpengine.com/?p=4211#comment-34668I remember when baby Lucy was born. I have been a casual acquaintance of Shauwni for a few years and our daughter’s were in dance class together. That little extra toe on that adorable little Lucy was just too cute! But as she describes, as things just weren’t right, I have seen miracles, not miracles of a cure but miracles of faith and endurance and strength. I have watched Shawni and her family thru her blog and occasional social visits and am in constant awe of her perspective and strength as a mother and her family around her. She truly is one of my biggest heroes. Thanks for sharing!!
]]>By: Barchbohttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-34667
Wed, 05 May 2010 20:32:02 +0000http://designmom.wpengine.com/?p=4211#comment-34667Oh, that gorgeous girl! I just want to kiss and squeeze those cheeks. And she was obviously born into the most perfect family for her. I sometimes think that is the greatest miracle of all.
]]>By: Leigh Moorehttp://www.designmom.com/2010/05/birth-story-from-shawni-pothier/#comment-34666
Wed, 05 May 2010 20:30:03 +0000http://designmom.wpengine.com/?p=4211#comment-34666Thanks for sharing this…I enjoy reading your blog and wish you and Lucy and the rest of the toes all the best. :)
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