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Familial Polyposis – Micro Images

Living with a rare genetic disease can be very difficult and challenging in terms of physical, emotional, and social being. People think they cannot survive with the disease and soon loose hope but somehow they do. This is just because of their strength that encourages them to fight back. In order to live a good life, find your inner strength and cope with the disease.

Life's a Polyp explores daily life with chronic illness caused by two rare diseases - Familial Adenomatous Polyposis and Short Bowel Syndrome. Jenny, the blogger, is a FAP patient and was diagnosed with the disease when she was 8 years old. She had to undergo a colectomy to remove her colon because the colon cancer had started to develop. Since then, Jenny is suffering from various symptoms of FAP and coping up with the disease. Follow her video to know more about the life with a rare disease.

Short-bowel syndrome is a condition in which the small intestine is not able to function properly. It is generally accompanied by symptoms such as diarrhea, dehydration, malnutrition, etc. People suffering from this condition need to use the washroom many times a day. This may continue for several hours. In the following video, Jenny discusses what the day was like with Short Bowel Syndrome.

Jenny describes different coping techniques for managing bothersome emotions, sleep, and pain after a recent medical procedure. These techniques have helped her cope with the symptoms in high school. Follow the video to know more about these techniques and follow them to cope up with your symptoms.

Jenny is a FAP patient. From past few months, she is experiencing an increase in the severity of symptoms such as nausea, abdominal pain, vomiting, etc. Upon proper diagnosis, her doctor told her that she is suffering from C diff infection. C diff is referred to a bacterial strain called clostridium difficile which results in the occurrence of diarrhea and more serious intestinal conditions like colitis.

A conference was organized in Michigan on ‘hereditary colorectal cancer family day’ on November 11, 2017. The main topic of the discussion was about Familial Adenomatous polyposis (FAP) and lynch syndrome. There were doctors, counselors, speakers, activists, patients, etc present in the conversation to discuss about many aspects of the disease. Learn more about the conference in the video.

Ostomy is a surgical procedure in which a hole is made in the abdomen wall in order to excrete the waste out of the body. This procedure is generally performed when the patient is suffering from some serious intestinal condition. A pouch like bag is placed on the ostomy. The body excretes out its waste in the bag. As soon as the bag is full, it has to be removed properly and discarded. This video is a guide on how to wear your ostomy and clean it properly.

Familial adenomatous polyposis (FAP) is an inherited disease in which numerous growths, called polyps are observed in the colon and rectum . Almost all patients with this condition have to get their colon removed. Iron deficiency anemia is the most common symptom observed in FAP patients. This symptom occurs due to frequent blood loss from the body because of colon cancer. To properly treat the condition, patients have to undergo iron infusion sessions regularly for maintaining iron levels in the blood.

Familial adenomatous polyposis (FAP) is an inherited disease which is characterized by occurrence of intestinal cancer. In this condition, multiple growths, called polyps are observed in the colon and rectum part of intestine. Ostomy is a surgical procedure in which a separate opening, also known as stoma, is created near the abdomen in the body for waste to excrete out of the body. A bag is then attached to stoma where the waste could be collected. There are various types of ostomy. Learn about different types of ostomies and bowel and bladder diversions in the video.

Cole Eicher is 13 years old and he is a brain cancer survivor. For Cole, living a life with brain cancer was very difficult. He went through surgeries and various chemotherapy sessions to treat his cancer. Today, he is a cancer survivor and helps the organization in spreading awareness against cancer and raise funds in order to support research. The video gives an insight of the life of Cole Eicher and his contributions to the society.