Cancer Survivors Network - Comments for "Worried about my mom - Update"http://csn.cancer.org/node/247613
Comments for "Worried about my mom - Update"en-csnLike the way you think. I amhttp://csn.cancer.org/comment/1448245#comment-1448245
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1289343#comment-1289343">To heck with the death sentence</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Like the way you think. I am tired of Drs playing God.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 04 May 2014 22:41:48 +0000Txgrlcomment 1448245 at http://csn.cancer.orgThank you!http://csn.cancer.org/comment/1289927#comment-1289927
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1289881#comment-1289881">love4life-Know I&#039;m cheering</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Thank you so much Alice! It is great to have you and the others here to cheer us on!! We know how important it is to encourage the care givers as well as those who are fighting this disease. All of the updates you have been giving us helps us tremendously and we want to thank you for that. You also always seem to save the perfect thing at just the right time! I am very encouraged by your posts and your knowledge! I hope hubby is doing well, please give him a big hug from us all!</p>
<p>Yes, why does God trust us with so much! ;)It is only by His grace and comfort that we move forward.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 07 Oct 2012 23:08:57 +0000angeccomment 1289927 at http://csn.cancer.orglove4life-Know I'm cheeringhttp://csn.cancer.org/comment/1289881#comment-1289881
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<p><em>In reply to <a href="http://csn.cancer.org/node/247613">Worried about my mom - Update</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>love4life-Know I'm cheering from the sidelines for you and your mom as well as Angie and her mom. You've received a lot of encouragement and great advice from Gary, Phoenix Rising, I am Alive, Iceman, and many others. Absorb it and heed it. Your and Angie's mom are fortunate to have you and Angie; we all know how overwhelming it can be. </p>
<p>Remember the immortal words of Mother Teresa: </p>
<p>"I know God will not give me anything I can't handle.<br />
I just wish that He didn't trust me so much."</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 07 Oct 2012 20:35:00 +0000alice124comment 1289881 at http://csn.cancer.orgIt's a chronic illnesshttp://csn.cancer.org/comment/1289558#comment-1289558
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<p><em>In reply to <a href="http://csn.cancer.org/node/247613">Worried about my mom - Update</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>My onc also approaches RCC as a chronic illness. I noticed it was a urologist, not an oncologist who gave your mother 5-7 years to live. Is this a urologist who specializes in kidney cancer and is up on the latest treatments? Is this urologist intimately aware of the drugs in the pipeline that will be approved in the next couple of years? Many are not. The doc doesn't have a clue how your mother will react to the targeted drug therapies that are out there. She could be stable on one drug for years before trying another. Find an oncologist who is all about RCC. Good luck! Speaking of luck, how lucky your mom is to have a - well I think you are a daughter but I don't really know! Let's say "child" - like you who totally has her back.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 06 Oct 2012 20:55:43 +0000I am alivecomment 1289558 at http://csn.cancer.orgTo heck with the death sentencehttp://csn.cancer.org/comment/1289343#comment-1289343
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<p><em>In reply to <a href="http://csn.cancer.org/node/247613">Worried about my mom - Update</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>All of us want to believe in our physicians. We think of them as knowledgeable, dependable, subject matter experts, and then they tell us we're gonna die. Doctors do not know everything. If they did, they could cure this crap right off the top. So beginning with the fact that they don't know everything, believe they don't know the hour of our demise either.</p>
<p>My onc said kidney cancer is being approached as a chronic disease rather than a life-ending disease, and chronic disease can be managed. One drug works for a while, and if it stops, we start another, and there are several options now, as opposed to the two options we had 5 years ago, and the one option we had all the years before that. Now, my onc doesn't know everything either, but at least he's talking about something I can believe in.</p>
<p>The playing field is changing daily, and your change-makers and trend-benders are right here, typing out words of encouragement. See another doctor who realizes he/ she is not the Lord himself, and help your mom choose to live. </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 06 Oct 2012 03:21:11 +0000Phoenix Risingcomment 1289343 at http://csn.cancer.orgRememberhttp://csn.cancer.org/comment/1287611#comment-1287611
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1287484#comment-1287484">I agree- Go for another opinion!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>We are LIVING with cancer. We CAN do this. Stay tough mom!</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 01 Oct 2012 23:05:24 +0000foxhdcomment 1287611 at http://csn.cancer.orgI agree- Go for another opinion!http://csn.cancer.org/comment/1287484#comment-1287484
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<p><em>In reply to <a href="http://csn.cancer.org/node/247613">Worried about my mom - Update</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I hope that you should find a doctor that is positive, hopeful and helps her spirits. While I do appreciate the fact that doctors want to be honest, I think some can lack in their bedside manner and on the emotional side of the patient. I know that waiting is the hardest part and I hope you get good news on Wednesday! </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 01 Oct 2012 18:21:28 +0000emkatcomment 1287484 at http://csn.cancer.orgDon't give up..http://csn.cancer.org/comment/1287480#comment-1287480
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<p><em>In reply to <a href="http://csn.cancer.org/node/247613">Worried about my mom - Update</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Don't give up or get discouraged. Keep seeking answers. I was told by my mom's surgeon that there is nothing but sutent for RCC and that the disease will definitely take her out, he doesn't know when but it is a certainty. Well, i totally disagree with that surgeon. If he had thought that way then when he did the surgery why did he purposely avoid taking out two positive lymph nodes near the kidney? Your mom might just need to go on some oxygen. Have the lung doctor check her breathing and oxygen levels and see if she needs portable oxygen. This is what we are seeking for my mom at the moment as well. She is 80 and had surgery in March 2012 for her kidney..now they see she still has the two nodes near the kidney that the doctor decided not to remove, and two small 1 cm nodes in each lung. Her breathing was bad ever since the surgery when they told her her lungs were clear. But your mom should not worry, if the votrient isn't working there are many other drugs to try. She has to keep positive and if one doctor doesn't give her the answers she needs, then keep going just like FOX did and find what you need, it is out there. I certainly am doing the same thing with my mom. There is also a new drug that they rushed to the FDA for approval and it is very, very promising with very little side affects. That should be available soon. Tell mom not to worry and let her know there is a lot of progress and motivating stories on this board from people who are LIVING with this disease and know first hand! And you keep positive as well. If mom sees you down then she will worry more, i know it is easier said then done. i put on my game face each time i see mom! Keep her busy. Does she like to knit, crochet, paint, read, take walks? Whatever it is, keep her at it! Don't give up. Keep checking back here on the boards to see all of the positive results others are getting. I am with you fighting for my mom as well. Prayers for you all!</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 01 Oct 2012 18:17:48 +0000angeccomment 1287480 at http://csn.cancer.orgKeep fighting!!!http://csn.cancer.org/comment/1287464#comment-1287464
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1287456#comment-1287456">Icemantoo, we live in the</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>love4life,</p>
<p>For what its worth as another Michigander I support your decision to seek 2nd, 3rd, or 4th opinions if necessary. I'm sure you have read foxhd's story, he refused to take no for an answer until he wound up in the MDX trial which has yielded great results, same for Alice and John. Point is, there are new therapies out there and more in the pipeline. If she hasn't already, encourage your mom to read some of the inspirational stories of our members like Donna Lee that have continued to fight well beyond their assigned expiration dates. There is hope and we are getting closer every day to a cure.</p>
<p>Good luck and Godspeed,</p>
<p>Gary</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 01 Oct 2012 17:41:46 +0000garymcomment 1287464 at http://csn.cancer.orgIcemantoo, we live in thehttp://csn.cancer.org/comment/1287456#comment-1287456
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1287452#comment-1287452">Henry Ford Hospital</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Icemantoo, we live in the "thumb" of Michigan. I think it's time to get another opinion too. I just was leaning toward the 2 hospitals I mentioned earlier because they are supposed to be ranked #1 and #2 in the nation for kidney cancer and I definitely want to leave no stone unturned while looking for the best possible solution for my mom. </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/247613%23comment-form">Log in</a> or <a href="/user/register?destination=node/247613%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 01 Oct 2012 17:12:59 +0000love4lifecomment 1287456 at http://csn.cancer.org