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Monday, 13 May 2013

Lupus Kills

Deaths from lupus are rare these days, that's what you'll read in books and on websites.

It's true, deaths are rare in comparison to times when less was known about the disease and how to manage it.

But if someone close to you were one of the people who did die from lupus, you wouldn't really care that it was "rare" would you?

Having a condition which has no cure is frightening. Many people with lupus say they'd rather they'd had cancer, because then there'd be some hope of being cured... not just living with this ticking bomb which may or may not randomly decide to take out some vital organ needed for survival.

For lupies, so far, there's no hope of being cured (please keep praying for the researchers who are working to change that), only of keeping it under control. Because lupus is completely unpredictable, that means there's no way of knowing which of us will be those "rare" deaths.

It's not something any of us want to dwell on. But it's a reality we are all aware of.

There needs to be far more awareness of lupus, and more funding for research. We need a cure: the sooner the better.

Other blogs and books by the same author

Blogs

Patchwork

Patchwork is an anthology of short stories and poems by author and blogger Iris Carden. In this volume, you will deal with the aftermath of a dog bite in Bad Moon Rising, spend a sleepless night with The Possum in the Roof, and investigate a weird religious cult in The Time of Blood and Death. The print version of the book has a bonus story not in the eBook version.

Beside Still Waters

A book of sermons and brief reflections on Christian Scripture, by Rev Iris Carden. There is no specific order to the items in the book, they are intended to each be a "surprise" in that they are not related to the items around them. It is hoped that in each, the reader will find something new or special, or unexpected, a message from God. Rev Iris Carden has a Master's Degree in Theology and more than 10 years of experience as a Christian minister.

Cat-it-orial

Mr Bumpy is such a talented cat, he even runs his own website: mrbumpycat.com. He is a blogger, and a very bad cat. His favourite hobby is world domination. His next hobby is harassing the humans and other animals he shares a home with. In this book, you can see the world through the eyes of a megalomanicat, and some of the other animals who share his home.

Group Meeting

(Novella) In a facility for people recovering from mental illness: a group of people with sinister pasts starts to be visited by a girl who doesn't exist.

Karlee

Failing author Terry Dixon is made an offer that seems unbelievable. He can have all of his problems solved, have everything he has ever wanted, for a price. The price is something that "will not be too difficult" for him to pay - but it is not specified what it actually will be. With bills mounting up and a deadline looming, Terry agrees to a deal with something he knows nothing about.

About the Author

Iris Carden is a retired Uniting Church minister and former journalist. Lupus forced her to stop working. On good days she writes.

I've been nominated. Please endorse me.

This is an Australian Blog

Some of the issues, resources, information discussed may not be relevant to overseas readers. (Some things may not even be relevant outside of Queensland.)

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Healthline's Best Lupus Blogs 2017

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Contact Me

My email address is iris@sometimesitislupus.com

Have Something to Share on Sometimes, it is Lupus?

Lupus Links

Do you run a lupus-related website, or blog? Submit your links for the Lupus Links Page by emailing iris@sometimesitislupus.com and using the subject heading "Lupus Links." Tell me your page name and web address. If you have a social media page for lupus awareness/support, you will find you can now add your link to the page directly.

Lupus Business Directory

If you have a chronic illness and own/run a business, you can submit it to the Lupus Business Directory (listing is free). Email iris@sometimesitislupus.com using the subject heading "Lupus Business Directory." Give me your name, your chronic health condition, the name and web address of your business and a picture if you'd like one included.

In Memorium

You can add your personal memorial messages in memory of lupies who have fallen in the battle against the wolf in the comments section of this page. Or you can email them to iris@sometimesitislupus.com with the subject heading "In Memorium".

Warriors' Wall (goes live World Lupus Day, 10th May 2013)

If you are a lupus warrior who has something to say, please email iris@sometimesitislupus.com with the subject heading "Warriors' Wall". Include in the email, a nice clear photo of you, your first name, year diagnosed, country, and what you want to tell the world about lupus. (Up to 100 words.)

Blog written by Iris Carden. Permission is given to copy, with attribution, for non-profit purposes. Picture Window theme. Powered by Blogger.