Tag: duchennes

I know a guy called Carl. He’s a great guy. He does a lot of charity work and raising awareness about Duchenne Muscular Dystrophy. He’s a really nice guy. He’s friendly, funny, charming. He also has DMD.

“Duchenne muscular dystrophy is a serious condition that causes progressive muscle weakness. In Duchenne muscular dystrophy muscle fibres break down and are replaced by fibrous and or fatty tissue causing the muscle to gradually weaken.“**

Carl was recently chosen to be a torch bearer for the London 2012 Olympic games. He was excited and proud. It was a once in a lifetime opportunity and a dream come true.

For the last few days I’ve been following Carl’s tweets and his Facebook statuses.

The organisers of the London 2012 torch relay changed his route, making it impossible for him to take part. His condition means that a 6am torch relay start, in an area further away from him than his original route, isn’t possible.

Despite his pleads with the organisers, they refuse to change him back to his original route, and on one occasion the person he was speaking to on the phone hung up on him.

Understandably he is upset and also angry. Wouldn’t you be if you were in his position?

Carl is my friend and he deserves this chance. I am deeply disappointed for him.

I’m asking you to share this story. On Facebook, on Twitter, on your own blog. Tell your friends and your colleagues. Send the organisers an email or a tweet or even a letter.

Let’s see if we can’t persuade them to change to Carl’s route back to what it was, so that he can be part of this once in a lifetime experience.

Let’s make his dream come true.

He deserves this.

**taken from http://www.muscular-dystrophy.org/

UPDATE
Carl was contacted today by the organisers of the 2012 Olympic Torch Relay. They have changed his time and route. He will be carrying the Olympic Flame on June 23rd at 7pm in Manchester!
So pleased for Carl!