As Carm said if the cT comes back with some questions then a Pet scan will be considered. The level of Radiation in a Pet Scan is considerably much higher than a low dose CT scan and a Pet Scan also picks up a great deal of false positives.

You need and deserve to have a "Great team" helping you. That should be a priority. Find a cancer expert, in your cancer, close to you and findout if they can give you the support and medical care you need.

I strongly agree with Cas 1. You need to demand follow-up. I believe that I my cancer came back because one member of my team was on a giantic ego trip (I am in the process of putting together another team) I am finding that it is very difficult to get a second opinion, but thanks to the encouragement from the folks at WhatNext I am working on it.

My 1 yr check up was a pap, no labs , no scans, my doc said it isnt needed for my cancer. He said i only need to be seen every 3 months, and keep having paps, if any thing dsnt look right then he will follow thru. It sounds good to me, but i still see all of you going through more. Does this seem normal?

Hello,
I haven't been in exactly your situation regarding a second surgery, but I (my husband and I) did have trust issues with my radiologist. When we filed a request with the hospital for a different doctor, we started to get extraordinary treatment. It turned out that the original doctor was the best choice for my treatment, but it was pretty amazing how much better she began to communicate and anticipate what I needed once we stopped being "sheep." I think sometimes even extremely skilled doctors get in the habit of just doing what they need to do and tend to forget that each patient needs to be treated individually like a human being with varying needs for explanations and care. Before you change doctors, I'd advise pushing back some. Call your doctor's office and tell them you're not going forward with surgery unless you totally understand and agree with the need for it. That might be all it takes to get better care from this surgeon. And, it never hurts to get a second opinion if you still question the surgery after you get whatever is the best communication you can get from doctor number 1.

What is that Goodwill number?

The Goodwill number is one way you can tell how helpful each WhatNext member has been in providing information that may help others in the network. Someone with a “0” by their name may mean that they are new to the network, while someone with a higher number means that they may have either posted more information in their journey, asked questions and/or provided answers that others may have “liked.” Your number can change daily based on your contributions and involvement.

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