Wednesday, November 19, 2008

Fast and Fasting

Well the doctors have met and the consensus is that our little sunshine will be spreading his light at Primary's a bit sooner than we thought--think Tuesday. Yes, as in 5 days. I was a bit taken back when the surgeon's scheduling office called to say, "They are preparing to see McKay on Tuesday the 25th." She said it right out loud like it was any other day. I just kept saying, "That's so soon, it's just so soon."

In fact it's so soon that on our way to the MRI and echo tomorrow she asked me to stop by her office at the hospital and pick up the surgery packet that let's us know all the details about McKay's surgery plan --no time to mail it. All the better I guess...that means there's probably not enough time for me to find somewhere to hide him and make this all go away.

On the upside, recovery time is usually around two weeks for the Glenn, which means there is a truly good chance we will all be home for Christmas. How amazing will that be? So much to be thankful for, so, so much.

Today we must prepare for all that tomorrow brings. I am less concerned with the fact my three month old will celebrate that milestone in the hospital under sedation, the subject of machines that will map his tiny body, as I am that I have to stop feeding him a full 5 hours before the procedure. One does not come to look and grow like McKay by fasting...

Wow Mindi. I can't even imagine what you are dealing with at this time. When my days feel tough I think of you. You are amazing. Can they sedate McKay before the fast:)? That is going to be a tough one. I hope the hospital has some great turkey. I am guessing that is where you will be on Thanksgiving. We love and pray for you!

WOW, I got chills when I read this post. Oh Mindi, I think of you and your family everyday. I know that you have an amazing family and support system, but, we would just love to have your boys over here, we miss them! I hate to bombard you with phone calls, but, PLEASE call if you need a place for them to go, we would love to have them, no matter what time of day/night okay? We are praying for you all. Brooke

Please know that prayers are being offered on McKay and your family's behalf by people you don't even know. Reading your words takes me right back to the surgeries we have endured and my heart hurts. Use the obvious love and support you have from friends and family and trust your Heavenly Father. Easier said than done at times.- Kami Wright

Live. Laugh. Love.

About McKay

Mr. McKay is a miracle. He was diagnosed with a soup of congenital heart defects while still in utero including: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has undergone a series of three open heart surgeries to reroute his plumbing into a flow more likely to meet his growing body's demand for oxygen. He is post BT Shunt (August 22, 2008) and post-Glenn (November 25, 2008), and most recently traveled cross country to have the Fontan procedure at the Children's Hospital of Philadelphia (July 9, 2010). Today, McKay is a growing near-three-year old challenged with developmental hurdles we are anxiously trying to help him overcome. McKay offers heart baby hope of the most robust proportions. This blog chronicles our adventures.