Fragile X Research Foundation of Canada****Please be aware that this Syndrome is not well understood here in Canada by many medical practitioners. It is still commonly thought that permutation Fragile X does not carry any disorders or symptoms, thus the original category of it being a Permutation. However, that information is grossly outdated. Permutation Fragile X can carry many disorders with it, including Cognitive Delays and Learning Disabilities. If you are told by prominent practitioners that it doesn’t, please investigate further into the research and present it tactfully but firmly. Should you require further support, feel free to connect with one of the National Associations, or if desperate, contact this link below:

UC Davis Mind Institute – Fragile X Research and Treatment CentreThis Institute helped us find the research we needed for a family to prove to the schools that Permutation FX was indeed a chronic health disability designation. They were incredibly kind and helpful though terribly astounded at the lack of understanding by some of our Canadian Professionals.

HOMESCHOOL SPECIAL EDUCATION

SpEd is a faith-based homeschool association committed to supporting families who are homeschooling one or more children with a special need. We are located in Abbotsford, British Columbia, but we hope this site can be a resource for families in our province looking for support and encouragement.