Dave, Dr. Burt transplanted a young woman last year a 2nd time. She relapsed after only 2 years. There is a new facility in Puebla, Mexico. George Goss was/is involved in setting this up. This is outpatient treatment. Duration 4 to 6 weeks, housing, transportation and food provided during the neutropenic phase of the transplant. You need to have a carer with you. Total cost is $50k. There is a closed Fb group with all the information.https://www.facebook.com/groups/mexicohsct/

Here is the blog I posted on my treatment decision. I'm on month three of treatment and so far so good. Blood tests and liver tests are all normal, and no noticeable side effects. Of course as with most MS treatment, no noticeable reversal of any deficits either.

No major news to report, but I'm not convinced my new DMT is helping as much as I would like. The slide is continuing, albeit slowly. Might re-look at Rituxan and amp up the insurance press. The legs are most affected; cog is still solid and upper body is doing well.

As for your concerns that the forum is not up to date as you'd like on HSCT, I've actually regularly posted all of the recent research on the procedure. It has about a 50% (maybe 60% on the high side) success ratio of halting MS at 5 years (TBD on longer terms). Astonishing success rates, which is what you see boasted on Facebook ("look at me, I'm cured!"), are common in years 0-3. Year 5? Not so much. Sorry to be the bearer of bad news: don't believe everything you read on the internet.

It's year 15, and I have improved to the point I'm going to do the Walk MS for the first time ever. Just a mile. That dogged Dave would probably have done this too no matter how long it took to walk it if he'd set it as a goal. I'm a lot lazier and wouldn't do it until I could get through it without a bathroom break. It takes me 50 minutes to walk a mile.

I chart my recovery and the first three years were amazing. Things slowed way down after that, but overall I'm still improving.