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Scrap 6 Months

Hello everyone,

Below are a few updates from the Campaigns team on Scrap 6 Months.

New Video
We’re proud to be launching Jack and Rose’s story, a video showing why our Scrap 6 Months campaign is so important for people with MND and their families. Over 11,000 people have signed the Scrap 6 Months petition so far, we’d like to thank everyone who has signed and asked others to sign too. Please sign the petition calling on the Government to Scrap 6 Months and make benefits more accessible for people with MND and other terminal illnesses.

Personal Stories
We are looking for people who have had trouble when trying to apply for benefits such as Personal Independence Payment (PIP), Attendance Allowance (AA), Disability Living Allowance (DLA), Employment and Support Allowance (ESA), and Universal Credit (UC) under the Special Rules for terminal illness fast-track process (DS1500 form). If you’d be willing for your experiences to be used in our campaigning work – the campaigns team would love to hear from you, please email campaigns@mndassociation.org to be involved.

APPG
The All-Party Parliamentary Group (APPG) on Terminal Illness has launched an inquiry into people’s views of the 6-month definition of a terminal illness. You can submit your view via this website. The deadline for submission is 17 May 2019. Please consider sharing your views – it would be great to get as many voices of people affected by MND heard by the inquiry as possible.

If you are having difficulties accessing benefits, you can contact our benefits advice service by phone, email or webchat for support.

I contacted the Mnd line about universal credit. I was told I would receive a call back and did about a week or so later whilst at work. The guy gave me some info but i didnt have a pen. he took my email to email me but i never received anything so i emailed early dec but i never received a reply

We're really sorry to hear about this, and the team would like to get in touch with you to follow this up. If you could please email your contact details to campaigns@mndassociation.org. Alternatively, if you would like to send us a private message with your contact details we'll make sure someone gets in touch.