u was here for three and half years, this board was my life, but now because i am not going along with this and telling what i think, you all treat me like an outcast, which there are one or two that are not included in that statement , you DONT need to accept this, we get this in our life s ,they are people you cant see, they need you just as much as you need them, without you there is no community,i have been defending all of you to them, but you know what this is your choice, you all deserve each other, why i am bothering none of could care less what i think, not to worry they are not going to hold this against you, i feel very sad that they would get away with this, but i love you anyway

~ Live in faith and expect the best. Through every trial, God will make sure you come out better than before.~

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17 Replies |Watch This Discussion | Report This| Share this:IF I am going out i am doing it with a bangu was here for three and half years, this board was my life, but now because i am not going along with this and telling what i think, you all treat me like an outcast, which there are one or two that are not included in that statement , you DONT need to accept this, we get this in our life s ,they are people you cant see, they need you just as much as you need them, without you there is no community,i have been defending all of you to them, but you know what this is your choice, you all deserve each other, why i am bothering none of could care less what i think, not to worry they are not going to hold this against you, i feel very sad that they would get away with this, but i love you anyway

I understand what you are saying. Without "US" there is no WebMD. We are the forums that keep this aspect of WebMD operating. Like a business needs it's employee's, you are correct that WebMD needs us as much as we do them.

Try Dearest Dem, to look at it from another viewpoint:

They have provided us with the webpage-forum in which to gather. Sort of a free meeting hall in a church, to be used by our group, our family for our own purpose.

I get what you are trying to do... If we all stood together and boycotted WebMD... perhaps it would enlighten them and force their hand... But they have other choices... They can simply find others who are willing... Then we not only lose the free space to gather but each other as well.

I understand what you are saying. Without "US" there is no WebMD. We are the forums that keep this aspect of WebMD operating. Like a business needs it's employee's, you are correct that WebMD needs us as much as we do them.

Try Dearest Dem, to look at it from another viewpoint:

They have provided us with the webpage-forum in which to gather. Sort of a free meeting hall in a church, to be used by our group, our family for our own purpose.

I get what you are trying to do... If we all stood together and boycotted WebMD... perhaps it would enlighten them and force their hand... But they have other choices... They can simply find others who are willing... Then we not only lose the free space to gather but each other as well.

why do people think that they are bonded to this dam website , they will lose there friends if there is no website, they cant have both ways, not that matters but i have had A HARD A ENOUGH TIME LETING GO, AND THAT THIS MADE IT SO MUCH WORSE, MY SON IS GOING TO THE HOSPITAL AND FIGHTING NOT TO TAKE A KNIFE AFTER NEXT MONTH I WANT TO CARRY OUT MY PAN THIS WEBSITE IS NOT GOING TO HOLD THIS AGAINST YOU, I AM NOT PART OF HERE SO NOT WORRY THIS WEBSITE IS SAFE

~ Live in faith and expect the best. Through every trial, God will make sure you come out better than before.~

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Report This| Share this:IF I am going out i am doing it with a bangwhy do people think that they are bonded to this dam website , they will lose there friends if there is no website, they cant have both ways, not that matters but i have had A HARD A ENOUGH TIME LETING GO, AND THAT THIS MADE IT SO MUCH WORSE, MY SON IS GOING TO THE HOSPITAL AND FIGHTING NOT TO TAKE A KNIFE AFTER NEXT MONTH I WANT TO CARRY OUT MY PAN THIS WEBSITE IS NOT GOING TO HOLD THIS AGAINST YOU, I AM NOT PART OF HERE SO NOT WORRY THIS WEBSITE IS SAFE

we are obviously bonded, not to the site, but to the group of souls who have found it. And you, and I and everyone else have given a piece of ourselves- no matter how small or large. I wish the very best for your son and for you. Please breathe and try to clear your head. I understand you are very upset, but there is no need for anything rash. Stay safe and much love

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Report This| Share this:IF I am going out i am doing it with a bangwe are obviously bonded, not to the site, but to the group of souls who have found it. And you, and I and everyone else have given a piece of ourselves- no matter how small or large. I wish the very best for your son and for you. Please breathe and try to clear your head. I understand you are very upset, but there is no need for anything rash. Stay safe and much love

The website is only the private "room" in which we all can come together.

Do you have suggestions as to other private, not public website's (like Facebook or Twitter) for all of us to come together as family? Perhaps if you could list alternative "rooms" for our family to choose from, it would help your cause.

The website is only the private "room" in which we all can come together.

Do you have suggestions as to other private, not public website's (like Facebook or Twitter) for all of us to come together as family? Perhaps if you could list alternative "rooms" for our family to choose from, it would help your cause.

I didn't come here because of Caprice. I simply found her here when I got here. I came to be an advocate for those who SI. To use my knowledge and talent to reach out and help others who have been in my shoes.

I am a lamp post in the dark.

I will not abandon my task. I don't want to go to some obscure site where those who need comfort may never stumble upon.

Webmd isn't going to change corporate level plans because we all are throwing a temper tantrum.

I'm not really a psychopath, I just play one on the internet.

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Report This| Share this:IF I am going out i am doing it with a bangI didn't come here because of Caprice. I simply found her here when I got here. I came to be an advocate for those who SI. To use my knowledge and talent to reach out and help others who have been in my shoes.

I am a lamp post in the dark.

I will not abandon my task. I don't want to go to some obscure site where those who need comfort may never stumble upon.

Webmd isn't going to change corporate level plans because we all are throwing a temper tantrum.

Dem, I'm sorry that I don't have much to say right now because I'm also really struggling. I just wanted you to know that I understand what you are going through and how you are feeling. I'm continuing to struggle with the decision as to whether or not I will stay on this site which is why I haven't been posting much. I agree that if we all left it might send a message to WebMD but like Bonnie said, others would likely come here to take our place anyway. I also understand how difficult it is to deal with our safe place here on WebMD not feeling so safe anymore, losing our friend and mentor Caprice, and dealing with outside issues like a sick child (sadly my little E is facing some potentially serious health problems that have me very scared and just praying it doesn't end up being as serious as it all sounds). Hang in there, I do understand.

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Report This| Share this:IF I am going out i am doing it with a bangDem, I'm sorry that I don't have much to say right now because I'm also really struggling. I just wanted you to know that I understand what you are going through and how you are feeling. I'm continuing to struggle with the decision as to whether or not I will stay on this site which is why I haven't been posting much. I agree that if we all left it might send a message to WebMD but like Bonnie said, others would likely come here to take our place anyway. I also understand how difficult it is to deal with our safe place here on WebMD not feeling so safe anymore, losing our friend and mentor Caprice, and dealing with outside issues like a sick child (sadly my little E is facing some potentially serious health problems that have me very scared and just praying it doesn't end up being as serious as it all sounds). Hang in there, I do understand.

Thank you Bonnie. I really appreciate the prayers. E's pediatrician heard a heart murmur and referred us to a pediatric cardiologist. I didn't think anything of it because P has an "innocent heart murmur" that's no big deal. But an ultrasound yesterday revealed that E has thickening of the pulmonary and aortic valves. Right now it's not severe enough to limit the blood flow to her heart so we're just suppose to wait 2 months and do another ultrasound to make sure the condition hasn't worsened (if it hasn't then they'll continue ultrasounds every 6 months to check on it). It's just really scary to me to hear that my baby has a heart condition. So now we're monitoring both her heart and her enlarged kidney. I love her so much--- I don't want anything to be wrong with her. All prayers are definitely welcome.

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Report This| Share this:IF I am going out i am doing it with a bangThank you Bonnie. I really appreciate the prayers. E's pediatrician heard a heart murmur and referred us to a pediatric cardiologist. I didn't think anything of it because P has an "innocent heart murmur" that's no big deal. But an ultrasound yesterday revealed that E has thickening of the pulmonary and aortic valves. Right now it's not severe enough to limit the blood flow to her heart so we're just suppose to wait 2 months and do another ultrasound to make sure the condition hasn't worsened (if it hasn't then they'll continue ultrasounds every 6 months to check on it). It's just really scary to me to hear that my baby has a heart condition. So now we're monitoring both her heart and her enlarged kidney. I love her so much--- I don't want anything to be wrong with her. All prayers are definitely welcome.

I will continue to pray for you all, each and every day! I can not even imagine how this must feel to you and how the waiting increases the anxiety into panic mode for you.

It is okay to not always be strong. It is okay for you to express all of the emotions that are overwhelming you. Do not keep them in... Let them out... Cry, Scream, whatever it takes... I know you are not one who likes to express her emotions openly.. but this will help you.

I will continue to pray for you all, each and every day! I can not even imagine how this must feel to you and how the waiting increases the anxiety into panic mode for you.

It is okay to not always be strong. It is okay for you to express all of the emotions that are overwhelming you. Do not keep them in... Let them out... Cry, Scream, whatever it takes... I know you are not one who likes to express her emotions openly.. but this will help you.

Kate, I thought of you and your heart condition. Thank you very much for the prayers. I asked if this was something she might outgrow and was given a definite "No" but I'm still not completely clear as to the likelyhood of the condition worsening to the point that it will cause an issue for her. I was just so shocked by the news that something is actually wrong with her heart that I couldn't think to ask the doctor questions so now I have lots of questions that are unanswered. My husband is coming with us to the next appointment so we can hopefully get all our questions answered.

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Report This| Share this:IF I am going out i am doing it with a bangKate, I thought of you and your heart condition. Thank you very much for the prayers. I asked if this was something she might outgrow and was given a definite "No" but I'm still not completely clear as to the likelyhood of the condition worsening to the point that it will cause an issue for her. I was just so shocked by the news that something is actually wrong with her heart that I couldn't think to ask the doctor questions so now I have lots of questions that are unanswered. My husband is coming with us to the next appointment so we can hopefully get all our questions answered.

Dem, I'm really sorry that I seem to have hijacked your thread. Please go back and read my original response to you. I know you have too much you're dealing with on your own to be needing to worry about my issues on top of it. (((Dem)))

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Report This| Share this:IF I am going out i am doing it with a bangDem, I'm really sorry that I seem to have hijacked your thread. Please go back and read my original response to you. I know you have too much you're dealing with on your own to be needing to worry about my issues on top of it. (((Dem)))

OTW-Write down your questions & bring them to the doctor's appointment. Sometimes their answers will throw you so much that you forget what you were going to ask. Not that it's bad news, it's just how they present it sometimes that can throw you. I really hope you do not have to go through what my parents did, but they are very advanced in pediatric cardiology compared to when I was a kid. E is going to be fine. Get yourself a cardiologist you trust & take their advice to make E healthy.Big Soft Hugs!!My thoughts and prayers are with you!

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Report This| Share this:IF I am going out i am doing it with a bangOTW-Write down your questions & bring them to the doctor's appointment. Sometimes their answers will throw you so much that you forget what you were going to ask. Not that it's bad news, it's just how they present it sometimes that can throw you. I really hope you do not have to go through what my parents did, but they are very advanced in pediatric cardiology compared to when I was a kid. E is going to be fine. Get yourself a cardiologist you trust & take their advice to make E healthy.Big Soft Hugs!!My thoughts and prayers are with you!

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