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Sorry, I don't know what to do! I'm new here and I will read everything. My Neurologist doesn't even want to talk about CCSVI, and is pushing Gilenya.I had my CCSVI repaired in 2011. I feel great and I get a new MRI next week.

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6mary6 wrote:Sorry, I don't know what to do! I'm new here and I will read everything. My Neurologist doesn't even want to talk about CCSVI, and is pushing Gilenya.I had my CCSVI repaired in 2011. I feel great and I get a new MRI next week.

Welcome to ThisIsMS, 6mary6. You have found a supportive community of understanding friends; we are glad you have found us. There is lots of good information here to read; as questions come to you, ask away… we don't have all the answers, but we have many unique experiences and opinions we are willing to share.

From your post, I assume you are in the early stages of the relationship with your neurologist. I hope you took an actual list of your symptoms to discuss with him at your first meeting; I hope his neuro exam compared favorably with these suggestions from the University of Chicago:

Please find the Introductions forum and tell us a little bit about yourself, Mary. We look forward to getting to know you.

My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"

6mary6 wrote:Sorry, I don't know what to do! I'm new here and I will read everything. My Neurologist doesn't even want to talk about CCSVI, and is pushing Gilenya.I had my CCSVI repaired in 2011. I feel great and I get a new MRI next week.

6mary6 wrote:Sorry, I don't know what to do! I'm new here and I will read everything. My Neurologist doesn't even want to talk about CCSVI, and is pushing Gilenya.I had my CCSVI repaired in 2011. I feel great and I get a new MRI next week.

I apologize – I missed the fact that you have had CCSVI work done in 2011. NHE directed you to the appropriate forum.

Because pus taking Gilenya as a common side effect is herpes both gemital and cold soar oh an shingles, they label it viral infection under side effects, so you are basically asking for another lift sentence to be added to your MS

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