Daily life, needs and expectations of patients with acromegaly in France: An on-line survey

Daily life, needs and expectations of patients with acromegaly in France: An on-line survey

Published in Annals of Endocrinology

Collaborator: IPSEN

Authors: Albarel F, Elaraki F, Delemer B

Acromegaly is a chronic acquired disorder characterized by excessive secretion of growth hormone (GH) and increased insulin-like growth factor 1 (IGF-1) level, caused in most cases by a benign pituitary adenoma. Nowadays, its prevalence may vary between 28 to 137 per million people, while is annual incidence ranges between 2 and 11 cases per million inhabitants. To better understand the impact of acromegaly of patients’ daily life and evaluate the needs and expectations of patients in terms of services and information, a survey was carried out online in patients or relatives who were registered in a social network of individuals with acromegaly?