A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Friday, November 21, 2014

Five Faces of Niemann Pick Disease - Week 8

There are still more faces and families, so I am continuing this for another few weeks.

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It's October. That means it is time for my annual postings about Niemann Pick Disease. This year I will be highlighting different faces and families affected. Every Friday you can expect to see these posts.

Another mom has taken the time to put these images together. If you wish to see all the images, you can click here

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About Me

I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.