This blog is for those who suffer from Alzheimer's Disease,
FTD and forms of dementia, caregivers, friends and medical professionals that want to share their feelings, thoughts, encouragement, vent and open how they cope with this disease. I was diagnosed in 2004 with the early stages, and quite frankly it scared the beegeebees out of me. 2007 PET SCAN confirmed all.
Joe

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Wednesday, March 31, 2010

Before The Lynchers Come After Me!

Sorry I forgot they have discovered a GENE in some families that makes them more prone to AD. What a mystery, we knew it ran in some families, great rocket scientist work that there was a gene. So I ask, what does that do for these folks? Did you discover how the gene causes AD? (Yes or probably NO) Just how will this help those to follow me and others? I know I sound skeptic, but 100+ years and nothing. Imagine HIV in 1980's, we are now working and testing a vaccine for it. I am sorry for thoses who got the disease through no fault of there own, but sharing needles, unprotected sex, etc. your choice. I and those before me and with me have not had any choice in this. I could take on cancers and heart disease, but I think most of you know how I feel and why.

#7 Reported Killer - AD. No cure, No Survivors. Only you can really help come out of the shadows and join others and beat down the doors of stigma, we are not lepoards which now can be stopped.

1 comment:

When my father passed...well the day of, I had the nurse pull some blood that I drove down to UCLA to have testing done as part of the research on familial AD. My father was positive for the mutated gene. When I got that news, I started to worry and wonder what that would be like for me. Now, I just take the steps to make sure that my family doesnt go through what I had to with my father. I have long term health insurance started and I am trying to be healthy overall. But it seems to be a disclaimer whenever I get serious with someone I am dating. Maybe I should stop that....lol.

Welcome to Living With Alzhiemer's

We welcome you to our world where Alheimer's is taking its' toll. But we work together, the entire family, we love and share while the time is still there. Somedays are difficult and scary but the road is filled with Love & Kindness and God's help, who could ask for more. Hope you visit us often and you can email: jolynn1@cox.net, with thoughts, comments, questions and we will offer any help we can.

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This blog does not accept any payment for the listing of links to other sites nor do we accept or endorse any products, including those advertised on linked sites. This blog is simply my journey with the disease of Alzheimer's and Frontal Temporal Lobe Dementia. We pay tribute in memory to those that have past from this deadly disease.