Carol Nelson-Cheng, Vice President (Illinois) -This email address is being protected from spambots. You need JavaScript enabled to view it.Carol lives in Oak Park, Illinois, with her husband, James. Their middle child, Aileen, received a post mortem diagnosis of LDS. Carol has worked in philanthropy for over 30 years and is currently employed at a children’s hospital in Chicago. She holds an MA and BA in anthropology. She has been an active fundraiser for the LDSF and joined the Board in 2014.

Mary Kasten, Secretary (Wisconsin) -This email address is being protected from spambots. You need JavaScript enabled to view it. Mary lives in Elk Mound, Wisconsin, with her daughter, Caslin, who has LDS. Mary is an Inside Sales Representative for Heartland Business Systems. She has been an active fundraiser for the LDSF and joined the Board in 2014.

Sue Lawrence, Treasurer (New Jersey) - This email address is being protected from spambots. You need JavaScript enabled to view it. Sue lives in Central NJ with her husband Chris and 3 children. Her middle child Alexa (now 10) was diagnosed with Loeys Dietz in 2008. After Alexa's second heart surgery, Sue realized the importance of ensuring LDS patients are well educated and have an open forum for communications and therefore decided to get directly involved through the Board. Sue has a Bachelors in International Business from James Madison University and has worked in financial services for over 20 years.

Gretchen MacCarrick President Emeritus (Maryland) - This email address is being protected from spambots. You need JavaScript enabled to view it.Gretchen lives in Parkville, Maryland, with her husband, Jacob. She is a genetic counselor at Johns Hopkins University in Baltimore, Maryland, working primarily with individuals diagnosed with LDS and other connective tissue disorders. She holds an MS in Genetic Counseling and a BS in biology. She is a co-founder of the LDSF, President Emeritus, and has served on the Board since 2007.

Gabe McCauley (Tennessee) - This email address is being protected from spambots. You need JavaScript enabled to view it.Gabe lives in Columbia, Tennessee, with his wife, Mandy, and two children. Their oldest child, Scout, has LDS. Gabe owns and manages a film production company. He holds an undergraduate degree in Electronic Media. He joined the LDSF Board in 2014.

Dawn Reiner (California) - This email address is being protected from spambots. You need JavaScript enabled to view it. Dawn lives in Woodland Hills, California, with her husband, Andrew, and two children. Their daughter, Nicole, has LDS. Dawn has dedicated the last twenty-five years to working with parents of typical and special needs children. She is currently working as a parent, family and youth life coach. She holds an M.Ed. and a BA in marketing. She is chair of the 2016 Conference Committee and joined the Board in 2014.

Julie Wilson (West Virginia) - This email address is being protected from spambots. You need JavaScript enabled to view it.Julie lives in Weirton, West Virginia with her husband Chris and their son Connor, who has LDS. Julie works as a digital marketing quality assurance team lead for a global information technology consulting company in Pittsburgh, PA. She was a 2016 conference committee member and joined the board in 2016.