Earlier this year, researchers from the Telethon Kids Institute and the University of Sydney released a national tool to diagnose the disorder.

They believe it is helping to diagnose the disorder earlier, more accurately and more consistently around the country.

But Telethon Kids Institute researcher Dr Amanda Wilkins said more needed to be done if the tool was to reach its potential. She said doctors and patients were often unwilling to broach the sensitive subject, but it was a necessary conversation.

"But at the same time there is a responsibility to the child to try to help that child have the best developmental outcome."

She also emphasised that the onus was on the parents to be upfront with their doctor.

"I think it's really positive if women are willing to be honest with their doctor," Dr Wilkins said.

"Then if their pregnancy is still continuing they have the opportunity to have some counselling to help them reduce their drinking behaviour and it will be a better outcome for the child."