Tag: BC

A day dedicated to recognizing their importance within a stressed family unit. Counselors will lead workshops age specific age appropriate workshops up to and including the teen years. A guest speaker will host a strategy session for parents. Siblings of children affected by rare disease are the ones who can often feel neglected. Frequent hospital…

Rare Finds Featured on ‘Vancouver is Awesome’ Vancouver Is Awesome promotes everything that makes Vancouver awesome, from old to new and everything inbetween. They’re like the human interest piece on the news… only different.This week they found the Rare Disease Foundation and our Rare Finds Gala, well, Awesome! Take a look here! Isabel Jordan

Suman Bakshi is featured on Global TV for being one of five top companies in British Columbia for Community Impact for creating the Diamond Race in 2011 – an amazing fundraiser for the Rare Disease Foundation. Isabel Jordan