“When you have come to the edge of all light that you know and you are about to drop off into the darkness of the unknown, faith is knowing one of two things will happen: there will be something solid to stand on or you will be taught to fly.”~ Patrick Overton

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Wednesday, May 20, 2009

"In the dark dreary nights, when the storm is at its most fierce, the lighthouse burns bright so the sailors can find their way home again. In life the same light burns. This light is fueled with love, faith, and hope. And through life's most fierce storms these three burn their brightest so we also can find our way home again."~Author Unknown.

Ever facing forward,doing my very best to fix my gaze upon that beacon,who's glow can often vacillate dramatically between a glimmer and a blinding light and regardless of circumstances that surrounds us daily,it still shines.

Zoey seems to be feeling a bit better.Three major antibiotics will tend to do that when infection is dragging you down.In her case,that darn g-tube is the culprit.That g-tube looks one thousand percent better and for Zoey's comfort,we are very grateful for that.She did go up ever so slightly in her white count,.22, but we tend to not get too overly excited about that as Zoey has been known to take a few steps forward and like 10 back, in a very short period of time.We will however, have a better idea when Friday's labs come.Zoey's disposition is wonderful and she continues to plug along with very few major issues.We are forever grateful for that and know,on the 4th floor, this is a rarity and a blessing.Love to you all and thank you for your steadfast friendship and your faith filled prayers.We are lifted and carried by them all daily.Prayers please, especially also for Sol Merie,Pablo,Madison,Kai,Sarah,Justine,Jaden,Ricca and Klein.Warriors of the fiercest kind.All of them.

She is so amazing to have such a sweet disposition at such a miserable time. Heather, Zoey is something extra special and I believe with my whole heart that she is here in this world for an extra special reason.Sending love and prayers as always.

Praying for all those warriors. I need to go check on Pablo, its been a while. how long have you been there now? We are counting the days until home for you. She looks as gorgeous as ever. Man you have baby legs for every day don't you? Were did you get yours?

Let's hope little Zoey - maybe,just maybe you've turned the corner and counts are heading upward! Great expressions - that third one is awesome - it is true pictures are better than a thousand words! Go, go Zoey girl. Everyone is praying you'll be home soon and outside in the sunshine!

Praying for the cutest little gal that I have ever seen! That's you Miss Zoey! You are such a trooper and even though you and your family are going through so much, you are still smiling and inspiring all of us! Hugs and prayers!!!

Zoey, Zoey, Zoey, love the pictures; they are so good I feel like she is in this room. I guess it's her super amazing spirit. So good to hear she is feeling better, what a rough go. Prayers and my love are constant for all of you. Jake is a sweetheart, so beautiful. Prayers for all the tiny warriors with such big hearts and souls. Thinking of you, bless you, Christi Harman

I check your blog everyday to get updates on precious little Zoey, and think and pray for her often. She is such an amazing, resilient and beautiful little sweetie! Her adorable personality shines through in every photo. I am a local LA mom of a 3y.o girl with DS and am so touched and amazed by you and your family and especially your little cutie. Thank you for sharing your lives with us... Sending prayers, positive thoughts and love your way daily...

Could it be you?

Do it for Zoey and all of her fellow warrior friends.

Never Give Up. Help put an end to SMA. Get involved today

"Strange is our situation here upon earth. Each of us comes for a short visit, not knowing why, yet sometimes seeming to a divine purpose. From the standpoint of daily life, however, there is one thing we know: That we are here for the sake of others ... for the countless unknown souls with whose fate we are connected by a bond of sympathy. Many times a day, I realize how much my outer and inner life is built upon the labors of people, both living and dead, and how earnestly I must exert myself in order to give in return as much as I have received." ~Albert Einstein

"People are often unreasonable, illogical, and self-centered; Forgive them anyway. If you are kind, People may accuse you of selfish, ulterior motives; Be kind anyway. If you are successful, you will win some false friends and some true enemies; Succeed anyway. If you are honest and frank, People may cheat you; Be honest and frank anyway. What you spend years building, someone could destroy overnight; Build anyway. If you find serenity and happiness, They may be jealous; Be happy anyway. The good you do today, people will often forget tomorrow; Do good anyway. Give the world the best you have, and it may never be enough; Give the world the best you've got anyway. You see, in the final analysis, it is between you and God; It was never between you and them anyway."Mother Teresa~

Simply Amazing ...

Watch.Share.Educate.Changing the world, one extra chromosome at a time.

"Some luck lies in not gettingwhat you thought you wantedbut getting what you have,which once you have got ityou may be smart enough to seeit is what you would have wantedhad you known....~ Garrison Keillor

"Through Rose Colored Glasses"

Click on the picture to read Cailtin's amazing tribute to her sister

"Faith is being sure of what we hope for and certain of what we do not see."~Hebrews 11:1

Click on the button's below. Is one beautiful face calling you, speaking to your heart?