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Saturday, March 10, 2012

Calling All Sports Fans

TICKETS ARE NOW ON SALE

This year FIRST is hosting two Ichthyosis Awareness Nights during Ichthyosis Awareness Month. This is an opportunity for FIRST to create awareness at the ballparks and have their message on the stadium scoreboards. FIRST also receives a donation back for each ticket sold!

Join us at Citizens Bank Park

Monday May 7, 2012

as the Philadelphia Phillies take onthe New York Mets.To order tickets to the Phillies game click here

We plan on attending the Mets game at Citifield. It will be Evan's first baseball game and though excited I am quite nervous. I have never brought Evan to such a large public event, never mind in a big city. Luckily it is an evening game, so there is less concern with overheating issues as there would be on a sunny afternoon. On a positive note, I am looking forward to meeting with other FIRST members & families, especially since this will be the first FIRST event our family has attended.

If you live in the Northeast this will be an enjoyable event while benefiting a great cause. Hope to see you there.

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"....Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. Ichthyosis affects people of all ages, races and gender. The disease usually presents at birth, or within the first year, and continues to affect the patient throughout their lifetime....."

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About this blog

This blog is dedicated to Ichthyosis Awareness as well as sharing Evan's story as we experience the challenges and triumphs while living with Harlequin Ichthyosis.

About Me

Mommy to an amazing little boy who makes me smile each and every day. With two degrees sitting on the back burner (Master's in Education and Bachelor's in Fashion Design) I spend my days caring for my child with Harlequin Ichthyosis.
Learn more at: www.FirstSkinFoundation.org