tag:blogger.com,1999:blog-22793952728317731382017-07-23T04:06:14.471-05:00Tynan's CrusadeTynan's Crusade is a cause to support a 5 year old boy battling LeukemiaAbout Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.comBlogger76125tag:blogger.com,1999:blog-2279395272831773138.post-45328247279928112922012-10-22T11:58:00.001-05:002012-10-22T11:58:25.790-05:00Looking forward to good things!On Saturday I had the pleasure of meeting a young man who is about to go to transplant after only 8 weeks of treatment. My heart is heavy for this family, however it is an inspiration to see a great fighter in Justin. He is determined to beat this and live life to the fullest. Good luck Justin we are praying for a full recovery! <br /><br />On Sunday we were part of The Leukemia and Lymphoma Society's Light the Night Walk in The Woodlands. It was awesome to see so much support all over again. The same generous and genuine support that we received during the most difficult 3 years of our lives. <br /> <br />There were so many things we learned through Tynan's journey, and as difficult as it still is today, We learned that sometimes winning means accepting God's will, to be free of the pain here on earth. We feel that we were blessed with the miracle of TIME. <br /><br />We have always felt the want, to pay it forward and now we will continue Tynan's Crusade with a foundation determined to help terminally ill kids, just like Tynan, smile through the pain and disappointment. We will dedicate our efforts on helping families make memories and enjoy the time God has given them. <br />About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-4275849051134332972012-10-07T11:22:00.001-05:002012-10-07T11:22:29.353-05:00It's a small worldWe met Tori through Sykora; Tori knew Amy and Lenora; Lenora donated a "girls weekend" for auction that was won by Norma, Veronica, and Sue. The girls could not make it and kindly gave Chapa and I the weekend. So this weekend we went to Burton Tx and ventured to Round Top for the 45th annual Antique Show. There was not one shop we went in to that we didn't say, "if mijo was here, we'd be leaving with that." i could just imagine going home with the bed of the truck full of saddles and huge life size metal horses. We may have spoiled him a little in his last 3 years of life, BUT there is NOTHING we'd do different. <br /><br />While we were there we met a gentleman who saw our Tynan's Crusade T-shirts and wanted to know if we were from Tynan. He ended up being from Falfurrias, Tx close to my hometown of Premont. Just a couple shops later we met Phyllis, who was attracted to the T-shirt as well. She was from Tynan, Tx. Wow!!! Then she questioned why we said "was our son." She too lost a child, a fighter, an angel of God and she reminded me how lucky and blessed we were to have been chosen as their mama's. <br />Her daughter Melissa had Hodgkin's Lymphoma, went through 2 bone marrow transplants and beat the cancer. She endured all her treatment while attending college and graduated top of her class. She later had complications as a result of the chemo and radiation she had been exposed to. RIP Melissa. <br />It is so heart warming to have these random encounters with strangers. I feel as if it is Tynan letting me know and reassuring me that Tynan's Crusade will succeed and that with him giving us the strength we need, we will help those families who will endure the hurt, and emptiness that we feel on a daily basis. <br />We ended our weekend visiting Tynan's favorite vacation spot and saying hello to some great friends. <br />Thank you to everyone who made this weekend special. God Bless About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-64076485961270000542012-09-21T07:43:00.001-05:002012-09-21T07:43:47.467-05:00Tynan ToughWanted to thank everyone who joined us; not only at Black Elementary; but all around; in wishing Tynan a happy birthday!!!! We will be donating $100 to our Leukemia an Lymphoma Society's Light the Night Walk!!!! Go Team "Tynan's Crusade"<br /><br />Also want to let everyone know that the Tynan Tough stickers are here!!! We will be in Premont this weekend and will take some with us. The small sticker is $2.00 and measures about 2 1/4 x 3 3/4. The large stickers are about 4 x 6 and are $4.00. We also have patches and those are $10. <br />This is the last of the patches. These will not be re-ordered. <br /><br />Be sure to message me if you are interested in a sticker or a patch. <br /><br />Thank you Crusaders for all your love, support, and prayers! God Bless!About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com1tag:blogger.com,1999:blog-2279395272831773138.post-42362714014647927892012-09-16T17:07:00.001-05:002012-09-16T17:07:44.772-05:00Almost 6On Tuesday, September 18th we will remember Tynan and celebrate his 6th birthday with Cale and a balloon release, from the Black Elementary playground. Everyone is welcome to come sing Happy Birthday! Balloons will be released at 7pm. <br /><br />Thank you all for the continued support and prayers. About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-54763944858042414242012-09-09T20:36:00.001-05:002012-09-09T20:36:02.835-05:00Sykora continues to amaze us.Today we were back at Texas Childrens Hospital with Sykora. Not for medical reasons, but instead, so that she could&nbsp;be honored for entering an art piece in The Periwinkle Foundation's&nbsp;Making&nbsp;a Mark art project.&nbsp;&nbsp;There were over 350&nbsp;art pieces and she was 1 of about 20 that were chosen for the Purple Ribbon Award.&nbsp; This is her 2nd year to receive the Purple Ribbon.&nbsp; We are very proud of her. <br /><br />In the last 2 weeks of school, she has only had one "break down" that we know of.&nbsp; We are very fortunate to have teachers at Black Elementary who can empathize with what she must be feeling and are willing to help her vocalize her feelings at that moment&nbsp;or allow her to just hurt at that moment.&nbsp; She has expressed some feelings around others, but still hesitates to "feel" when she is home with us.&nbsp; <br /><br />She has initiated a "healing step" for all three of us in which we are to write a note to Tynan, when we need to talk to him; to tell him we love him, miss him, or just to share a thought of that day; and then place the note in his urn, "so he can read it."&nbsp; Call me crazy but, I think she deals with things almost better than we adults do. She continues to be our source of inspiration, and strength. God Bless her.<br /><br /><div style="text-align: center;">She is...............TYNAN TOUGH!!!!</div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-75374611645534927232012-08-29T12:52:00.001-05:002012-08-29T22:30:26.083-05:00Seems like YesterdayToday marks one month since Tynan's passing and it still hurts the same. People always say that it will get better but they don't usually say it has to get worse before it gets better. Our hearts are still empty and our eyes still fill up with tears just to think what could have been. But each day we do our best to hide our sorrow and put on a smile in our faces. <br /><br />Our fears are for our daughter. Does she completely understand; does she really grasp all of this, and will we be there when she falls. For now we deal with it as most would do; one day at a time. We try to keep her distracted and busy.<br /><br />We were given tickets to the PBR show in San Antonio long before Tynan left us; and so many people worked in making it all about him. He was to be the star that night or at least feel like it. When we lost Tynan, we had thought that we would not go without him; however Sykora changed all of that, and we couldn't be happier with how San Antonio turned out. Only God could plan it that well. We did not know that Fabiano would be dedicating his weekend to our Cowboy Angel. Nor did we know that most of the cowboys that night would be wearing a sticker on their vests that read "Tynan Tough" We only knew that we were going to meet him in person. We didn't even have tickets for Friday night ti about 3pm that day. While we sat in the crowd my brother received a text message that said something like....they are talking about Tynan on TV. I couldn't stop shaking. My emotions were all over the place. And never did we expect to have been put on live TV the very next day. I know in my heart without a doubt that my little man rode with Fabiano that night. That was his dream and that night he made his Gold Buckle Ride. <br /><br />Thanks to each and everyone that made San Antonio a night we will never forget. We Love You ALL! <br /><br />For those of you following our blog, we will continue to post updates on Sykora, and for upcoming Tynan's Crusade events. Thank you for following us through Tynan's battle and beyond!!!!<br /><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-Z5Nqc6RP5xA/UD5W5ywTQvI/AAAAAAAAApY/nfa9h1KYpAI/s640/blogger-image-1550357636.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-Z5Nqc6RP5xA/UD5W5ywTQvI/AAAAAAAAApY/nfa9h1KYpAI/s640/blogger-image-1550357636.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-3gUGSVsmxuo/UD5Wo0KzBTI/AAAAAAAAAoQ/jXyHDafdDME/s640/blogger-image--1857316514.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-3gUGSVsmxuo/UD5Wo0KzBTI/AAAAAAAAAoQ/jXyHDafdDME/s640/blogger-image--1857316514.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-bCUtzOwoFEY/UD5WprbwCyI/AAAAAAAAAoY/gWc6MaVggtQ/s640/blogger-image-638699566.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-bCUtzOwoFEY/UD5WprbwCyI/AAAAAAAAAoY/gWc6MaVggtQ/s640/blogger-image-638699566.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-dKF2-WV3lfc/UD5WqCPue6I/AAAAAAAAAog/gfpQcXECD0I/s640/blogger-image-775670941.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-dKF2-WV3lfc/UD5WqCPue6I/AAAAAAAAAog/gfpQcXECD0I/s640/blogger-image-775670941.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-J2_oEV31_0w/UD5Wq4z_urI/AAAAAAAAAoo/zWNZry5R4UQ/s640/blogger-image--2142013206.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-J2_oEV31_0w/UD5Wq4z_urI/AAAAAAAAAoo/zWNZry5R4UQ/s640/blogger-image--2142013206.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-jAp6hDb4NmA/UD5WrtCeSNI/AAAAAAAAAow/qABOfse2oYU/s640/blogger-image-1899622285.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-jAp6hDb4NmA/UD5WrtCeSNI/AAAAAAAAAow/qABOfse2oYU/s640/blogger-image-1899622285.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-qSpV71eqF9Y/UD5WsQ6_3NI/AAAAAAAAAo4/01Hbb5o1oZw/s640/blogger-image-1979783541.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-qSpV71eqF9Y/UD5WsQ6_3NI/AAAAAAAAAo4/01Hbb5o1oZw/s640/blogger-image-1979783541.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-5pZod5WH0d4/UD5WtPdyWMI/AAAAAAAAApA/HJUWAEFHttY/s640/blogger-image--1505935325.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-5pZod5WH0d4/UD5WtPdyWMI/AAAAAAAAApA/HJUWAEFHttY/s640/blogger-image--1505935325.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-HaLPlC9jaWA/UD5Wtvw6mGI/AAAAAAAAApI/jcDeEBGMT4E/s640/blogger-image-786313579.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-HaLPlC9jaWA/UD5Wtvw6mGI/AAAAAAAAApI/jcDeEBGMT4E/s640/blogger-image-786313579.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-UodwGZydbcI/UD5WuRkDkmI/AAAAAAAAApQ/kdKzOyB_IsQ/s640/blogger-image-1478992885.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-UodwGZydbcI/UD5WuRkDkmI/AAAAAAAAApQ/kdKzOyB_IsQ/s640/blogger-image-1478992885.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-Z5Nqc6RP5xA/UD5W5ywTQvI/AAAAAAAAApY/nfa9h1KYpAI/s640/blogger-image-1550357636.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a></div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-61258552041753882892012-08-05T00:24:00.001-05:002012-08-05T00:24:38.890-05:00Thank YouWe wanted to take a minute to thank you all for the continued support and prayers through some of the toughest days. It is so heart warming to see the many family members and friends that came to the services; It shows us just how much he was loved and how he touched each and everyone of you in his own way. About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-44893608934329130292012-07-31T12:51:00.005-05:002012-07-31T12:55:15.779-05:00Funeral ArrangementsSorry we had not shared these last two from Tynan's Crusade FB page. <br /><br /><div class="text_exposed_root text_exposed">Funeral services are as follows:<br /><br />Viewing and Rosary<br />August 2, 2012 (6pm-9pm)<br />Rosary 7:00pm<br />The Church Without Walls<br />5725 Queenston Blvd<br />Houston, TX 77084<br /><br />Funeral Mass<br /><span class="text_exposed_show">August 3, 2012 (10:30am)<br /> Christ The Redeemer Catholic Church<br /> 11507 Huffmeister Rd.<br /> Houston, TX 77065<br /> <br /> There will be no graveside service.</span></div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com1tag:blogger.com,1999:blog-2279395272831773138.post-88640951924330963102012-07-31T12:51:00.001-05:002012-07-31T12:53:56.329-05:00Note from Tynan<span class="text_exposed_show">I am now an Angel! Lane wanted me to have my own day so came for me a little early &amp; took me at 11:14 p.m., July 29th. Thank you for all the love &amp; support you have given me and my family! Love Tynan</span>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-40557663383974209722012-07-29T14:44:00.001-05:002012-07-29T15:00:12.153-05:00Waiting on LaneAt the beginning of this year when our hopes had been shattered we talked to Tynan about going to heaven. He asked, "will Jesus come get me?" and he expressed his wish for his hero, Lane Frost to come get him, or maybe for Lane, John Wayne and Chris Ledoux, to come get him. We have been in pins and needles for almost 2 weeks and have watched him go through some rough times in this short time. All of our immediate family has come to see him, as well as many relatives and dear friends. We've listened to him plead for Jesus to take the pain away when he is in discomfort and can not rest. He is hanging on longer than his numbers say he should and in the back of my mind I wondered, what are you waiting for? Today I am reminded that Tynan's hero, Lane Frost will be celebrating 23 years with Jesus tomorrow. Though they never met, Tynan wanted "to be just like Lane." Though we will never be ready to say good bye, I can't think of a better way of knowing that he may finally meet his hero, and knowing that while God may not answer my prayer for a miracle he just might answer Tynan's prayer, and that's good enough for me.About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com2tag:blogger.com,1999:blog-2279395272831773138.post-17178205731993960252012-07-26T18:57:00.001-05:002012-07-26T18:57:09.846-05:00Waiting for Jesus<span style="font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">Though we are still getting moments of cherished memories Tuesday evening we were told that we would probably only have days with our little Cowboy. <span style="mso-spacerun: yes;">&nbsp;</span>There will be no more blood given and his potassium and calcium levels are both at levels that could cause his heart to stop.<span style="mso-spacerun: yes;">&nbsp; </span>His pain medicine started out at 5 mcg and is currently at 75 mcg and we can still give him added help (50 mcg) with the bolus of pain meds.<span style="mso-spacerun: yes;">&nbsp; </span>He is in a lot of pain and discomfort from his sac as the swelling has increased and a lot of itching on his bottom.<span style="mso-spacerun: yes;">&nbsp; </span>He gets very frustrated as he has frequent urges to urinate but is rarely able to produce.<span style="mso-spacerun: yes;">&nbsp; </span>Mom still gets in trouble frequently as she is the scapegoat for all that goes wrong but is the first person he wants to comfort him.<o:p></o:p></span><br /> <br /><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">Our best hope is that they can get the pain and discomfort under control and he will go quietly in his sleep.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-ansi-language: EN-US; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;">Thank you all for the continued show of support and prayers.</span></div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com13tag:blogger.com,1999:blog-2279395272831773138.post-47254961319790768072012-07-24T16:19:00.000-05:002012-07-24T16:21:34.823-05:00Update - Ups and downs<span style="color: blue; font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">Well we are still in the hospital and our little cowboy is in a lot of stomach pain and very nauseated.<span style="mso-spacerun: yes;">&nbsp; </span>Last night he made the comment “I can’t get any rest”.<span style="mso-spacerun: yes;">&nbsp; </span>They tried to add Adavan to his medicines but that made him so dizzy he could barely stand on his own and up till now he insists on getting himself up and down when he feels the urge to go to the bathroom (some urges do not process anything).<span style="mso-spacerun: yes;">&nbsp; </span>He is urinating some but not normal amounts.<span style="mso-spacerun: yes;">&nbsp; </span>Sunday night he vomited old and new blood and they are not sure exactly why just that he has a blood leak somewhere internal. He has been pretty swollen and what they originally thought was fluid built up in his sac they now believe is the infection from the abscess on his colon spreading.&nbsp; One of the antibiotics he was on for this bacterial infection stopped working after just a few days so they brought in Infectious Disease doctors and have started him on a new antibiotic.<span style="mso-spacerun: yes;">&nbsp; </span>Because of his delicate state they are limited to what they can administer and do for/to him.<span style="mso-spacerun: yes;">&nbsp; </span>Typically they would go in and try and drain the sores/fluid but in Tynan’s case they cannot so he has to just endure the pain/discomfort caused.</span><br /><br /><span style="color: blue; font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">He has been more alert the last few days but is in a lot of pain and discomfort. He sips on drinks when he’s awake and we can get him to and he requested and was able to eat some fruit yesterday so he finally got some food after over a week.<span style="mso-spacerun: yes;">&nbsp; </span>Unfortunately, because of the fungus infection still present they cannot give him intravenous nutrition as they said that would feed the infection and make it spread faster.</span><br /><br /><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="color: blue; font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">His blood pressure is again fluctuating and they want to put a patch back on him for this to keep it down – we however have mixed feelings about this because of the low blood pressures he experienced last week.<o:p></o:p></span></div><span style="color: blue; font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">He will get platelets today.&nbsp; And we were just told that his potassium is so low that it could cause his heart to stop and the only way to&nbsp;correct that is to push fluids and they can not do that because he will retain fluids and the fluids can get in his lungs and&nbsp;be very painful.&nbsp;</span><br /><br /><br /><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="color: blue; font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">He is still on this ride and is not giving up.<o:p></o:p></span></div><span style="color: blue; font-family: &quot;Times New Roman&quot;,&quot;serif&quot;; font-size: 12pt; line-height: 115%; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-bidi-theme-font: minor-bidi;">Thank you all for the continued show of support and prayers.<o:p></o:p></span>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-62551320640288086852012-07-21T09:44:00.002-05:002012-07-21T09:44:23.453-05:00Overdue Update<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings></xml><![endif]--> <!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>JA</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> 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table.MsoNormalTable {mso-style-name:"Table Normal"; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-priority:99; mso-style-parent:""; mso-padding-alt:0in 5.4pt 0in 5.4pt; mso-para-margin:0in; mso-para-margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt; font-family:Cambria; mso-ascii-font-family:Cambria; mso-ascii-theme-font:minor-latin; mso-hansi-font-family:Cambria; mso-hansi-theme-font:minor-latin;} </style><![endif]--> <!--StartFragment--> <br /><div class="MsoNormal"><span style="background-color: white; background-position: initial initial; background-repeat: initial initial; color: #333333;">Update and happenings of the last few days sorry we haven’t been able to update this daily.&nbsp; Tynan’s blood pressure has come back up and has been in the normal range for a couple of days.&nbsp;&nbsp; Wednesday he was finally able to urinate after 3 days but even rejoicing of that small step it was a terrible night as his little bottom is really bad with sores and the abscess that are very painful.&nbsp; It hurts so bad that he would try to get on the couch and it would take 5 minutes to just put his butt on the couch from the time he started crawling up on it and then he'd say “wait, wait, wait just a minute hold on just let me do this” and then we heard “oh my gosh Jesus please help me”.&nbsp; He was so </span><span style="background-color: white; background-position: initial initial; background-repeat: initial initial; color: #333333;">miserable and the numbing cream was not working and we pushed the pain medication button every 10 minutes and then some and it just wasn’t helping.&nbsp; They believe the abscess he has is pushing on his colon making him feel like he has to go to the bathroom but there isn’t anything to come out.&nbsp; The doctors say they have no hope that they will be able to get this infection under control and they expect it to only get worse, which means more pain and suffering.</span><o:p></o:p></div><div class="MsoNormal"><br /></div><div class="MsoNormal"><span style="background-color: white; background-position: initial initial; background-repeat: initial initial; color: #333333;">The amount of pain medication was doubled on his continuous drip Wednesday, as was the bolus amount they allow when we push the button.&nbsp; Thursday the docs thought his liver was starting to shut down but his blood work shows that it's not as bad as it looks but that there are signs of stress to the liver showing that the disease is progressing. He is retaining some fluids and today the docs said it sounds like there is some fluid in lungs. &nbsp;His blast count is showing 91.0% and 0 ANC, his white blood count (WBC) is 21, creatinine is in the 3's, potassium is 3.8. &nbsp;For now he will get platelets everyday and blood as needed.&nbsp; He sleeps most of the day because of the disease and medicines but there are still those moments we get like the day they came to do an ultrasound and he asked for “sister” and said he wanted/needed her so she got close to the bed and he reached for her hand and just held it while the test was being done.&nbsp; He asks for her regularly to be sure she is near and Sykora does not want to leave as she wants to be there for him.&nbsp; And yet another last night we got something that has not happened all week – he actually sat up and watched the Astros and sipped on water. &nbsp;Thank you God for these small moments.&nbsp; Though some numbers look much better than they did Monday the doctors are afraid the damage has been done and advised that we bring in out of town family to visit.</span><span style="background-color: white; background-position: initial initial; background-repeat: initial initial;"><o:p></o:p></span></div><div class="MsoNormal"><br /></div><div class="MsoNormal">Our Cowboy is not going down without a fight.<o:p></o:p></div><div class="MsoNormal"><br /><span style="background: white;">Thank you again for your love and support.</span></div><!--EndFragment-->About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com3tag:blogger.com,1999:blog-2279395272831773138.post-76790018180590559392012-07-16T23:42:00.001-05:002012-07-16T23:44:22.784-05:00Update 16 July 2012His blood pressure has dropped to 50's / 20's and still has not urinated. Giving him fluids to help his blood pressure can cause him to swell up and start retaining fluids in his lungs. Which would be painful and uncomfortable for Tynan. No fluids could put his kidneys in complete shut down. Giving him blood transfusions will elevate his potassium and could cause his heart to stop. No blood will leave him so tired that he will fall asleep and not wake up. He is at a high risk for his fugal infection to come back without his antibiotic; however it will make the kidneys worse. Tonight we got continuous pain meds via IV, and he seems to be getting a little rest. <br /><br />Praying he sees another day that God has made. <br /><br />Thank you again for your love and support. About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com1tag:blogger.com,1999:blog-2279395272831773138.post-64969840265165339482012-07-16T12:35:00.001-05:002012-07-16T12:35:37.357-05:00Abcess 16 July 2012We decided to come to clinic today since Tynan was feeling pretty bad yesterday; instead of waiting till tomorrow.&nbsp; After examining him they are pretty sure that he has an abcess inside the large intestine.&nbsp; We are being admitted today for a couple of days, in hopes that they can at least get some of his pain and discomfort under control.&nbsp; They will also start him on some IV antibiotics and fluids.&nbsp; The plan is to get him feeling better and send us home on more IV antibiotics and more meds.&nbsp; <br /><br />He will also be getting blood and platelets today.&nbsp; Our new all time low on platelets, was 4 today.&nbsp; And his red blood cells were at 6.8.&nbsp;About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-76210389659072447702012-07-15T17:20:00.000-05:002012-07-15T17:20:38.064-05:00Looking for that middle ground.Last week Tynan's numbers were down and back up again.&nbsp; Because of the chemo he is taking we were able to bring the blast count down considerably; however with that comes a low ANC; putting him at a very high risk for the fungal infection to come back. <br /><br />He'd been running a fever every morning between 4am and 5am; then for two days he was doing great. Since Friday evening&nbsp;he's been running fevers consistanlty(up to 105.0), lots of nausea and vomiting, stomach pain, (he says the stomach pain is different than last time), and sleeping all the time.&nbsp; He looks very tired and very uncomfortable again.<br /><br />We will be repeating a FISH test again at next clinic visit; hopefully that will be tomorrow instead of Tuesday.<br /><br />God Bless - From Tynan and the FamilyAbout Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-24684797860969060242012-07-03T12:01:00.002-05:002012-07-03T12:01:53.604-05:00Update from clinic 2 July 2012On June 26th we had a blast count of 6% showing in his bloodstream and a short 3 days later on Friday the 29th his blast count had gone up to 46.8%.&nbsp; Today our blast count has gone up again. It is now at 55.9%.&nbsp; We re-started his oral chemo meds and will pobably increase the dose&nbsp;today.&nbsp;&nbsp;The good thing is that he is not in pain at this time.&nbsp; He is still able to get around and play when he feels like it.&nbsp;&nbsp;&nbsp; We are getting blood and platelets today, as he is low on both.&nbsp; Probably due to the oral chemo.&nbsp; White blood cells are still high at 21,000; but his ANC is still looking good at 3,320; which is a great blessing.<br /><br />About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-53629411907125546582012-06-27T23:19:00.001-05:002012-06-27T23:19:48.745-05:00Conflicting NumbersTynan has never followed the logical pattern of how things are suppose to be; and Tuesday was no different.&nbsp; His red blood cells, platelets, and ANC are all great. He is retaining his red blood cells and his platelets; and his ANC is over 6,000.&nbsp; We did NOT have a blood or platelet transfusion on Tuesday which is awesome; however his white blood cells have jumped up to 10 (which could indicate that the cancer is getting worse.) and the blast count is back at 6%.&nbsp; Usually when the cancer is present all his numbers would be down.?.?.?.?&nbsp;Typically the marrow would need to be full of cancer before the blast count becomes visable in his bloodstream. Could this mean that his marrow has gone from only 55% cancer cells to 100% cancer cells in a matter of 4 days????&nbsp; In addition his FISH results are now showing only 86% donor cells.&nbsp; Not great, but still hopeful.&nbsp; We will repeat the FISH on Friday, and see what those results are showing.&nbsp; There is still a possibility that we will repeat a bone marrow aspirate to see what his marrow is showing in hopes that it will help us establish a pattern of the difference between the biopsy and the FISH results.&nbsp; <br /><br />On a good note, he seems to be doing pretty good.&nbsp; He's not taking any naps, and he has enough energy to WANT to go places and get out of the house.&nbsp; For that, we are greatful.<br /><br />God Bless You ALL!!!!!About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com2tag:blogger.com,1999:blog-2279395272831773138.post-36905423545958937902012-06-21T16:15:00.001-05:002012-06-21T16:15:10.333-05:00ANC is still getting betterToday has been a good day.&nbsp;&nbsp;Tynan's blood pressure has been good all day.&nbsp; His red blood cells (9.5)&nbsp;and platelets(82) are holding up, BUT we got both transfusions just for the extra boost and to make sure that he does not run low on platelets while attending the BIG EVENT this weekend.&nbsp; His ANC had been trending down the last 2 times we were here but has jumped back up to 4760 today!!!!!&nbsp; Yay!!!&nbsp; <br /><br /><div style="text-align: center;">Looking forward to the weekend.&nbsp; God Bless you all.</div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-54144677935723126692012-06-20T23:33:00.001-05:002012-06-21T11:12:25.142-05:00I think Marivel said it bestThe biopsy results were not what we wanted, or should I say, not what we expected to see.&nbsp; Tynan's marrow is showing 55% cancer cells.&nbsp; So even if he's not totally cured (yet), God is definitely working on something.&nbsp; He was working on something when he made the fungus go away.&nbsp; And after going to the ER with stomach pain; and high blood pressure; I think we have gotten his bloop pressure under control.&nbsp; <br />We've been given the option to go ahead and give Tynan a donor infusion; IF we want to.&nbsp; If he gets the infusion; we have to be willing to accept the risks. With a new cell transfusion they would have to give Tynan immune supression meds; which could cause the fungus to come back(we do not want that); but if they don't give him enough immune supression meds then the gvhd could be bad too. There are lots of complications that could arise.&nbsp; <br />We feel that God has brought us this far and will carry us through if it is his will. <br />God Bless you all. We Love You.<br /><div style="clear: both; font-size: xx-small; text-align: center;">Published with Blogger-droid v2.0.6</div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-66585375002811543812012-06-17T19:05:00.000-05:002012-06-17T19:05:08.479-05:00and now it's the blood pressure issuesWe have known for some time now that Tynan's kidneys are not functioning as they should be.&nbsp; This would probably be a combination of several things.&nbsp; Radiation, chemo and various medications would be the top three.&nbsp; Of course, bad kidneys gives us&nbsp;high blood pressure.&nbsp; Tynan was put on blood pressure medication while we were in Florida, for his Make-A-Wish trip to Disney.&nbsp; For the most part, his blood pressure has been under control; however, when we started agressive anti-fungal medication(IV), it got worse.&nbsp; His blood pressure has been on a roller coaster ever since.<br /><br />We came to the ER last night because he was having severe tummy pain.&nbsp; Thankfully it was just constipation.&nbsp; While that has been taken care of, we&nbsp;were admitted&nbsp;because of his blood pressure.&nbsp;&nbsp;It is still running high but is getting better.&nbsp; <br /><br />We will continue the blood pressure patch but&nbsp;will add another medication by mouth.&nbsp; We have also learned today that because of the type of fungus he had he will have to continue the anti-fungal medication(IV) for about 3 months; 7 days a week; and slowly be taken off of it.&nbsp;During this time his kidney function will be monitored closley.&nbsp; They are considering giving him another PICC line to help us keep him&nbsp;well&nbsp;hydrated during these months.&nbsp; When we are done with that we will continue a less agressive anti-fungal by mouth for about a year.&nbsp; <br /><br />And all of this rests on the results of the bone marrow biopsy that we are shooting for tomorrow.&nbsp;We have been put on the schedule as a backup, so keep your fingers crossed and pray that get a slot.<br /><br />IF the results come back with "miracle" written all over them; then the BMT/Oncology teams will have to decide how to proceed.&nbsp; Initially, the thought was to take more T-Cells from Sykora and tranfuse Tynan the same day; however IF the donor cells, already in the marrow, were stimulated by the fungus, there is a chance that&nbsp;"fresh" T-Cells could suppress the currently active cells.&nbsp; It is possible that we should just let God finish, in his own time, what he's started with Tynan's little miracle body.&nbsp; <br /><br />On a good note, the concerns we had regarding new cells causing some type of reaction, have been put to rest.&nbsp; So that means that we are on schedule for making it to the benefit in Premont this coming weekend, and having Tynan make his appearance in appreciation of the continued support and prayers.<br /><br /><em>There are a few people out there that don't know if they should believe; in heaven,&nbsp;or God, or miracles.&nbsp;&nbsp;Their faith has been tried, and they have let their anger get the best of them.&nbsp; People that say, how can there be a God, if this is happening to so many good kids?&nbsp; I can't say that I have never been angry, or have never asked why, but I have never given up on my God and my faith.&nbsp; My pain came from&nbsp;having enough&nbsp;faith&nbsp;to&nbsp;know that it's not what I want, it's what God wants; so matter how hard I pray for what I want, I know God will give me what I need or what I can handle.&nbsp; But I&nbsp;also have enough faith to&nbsp;ask for the ultimate miracle, and strength, and the ability to see&nbsp;Tynan's purpose clearly.&nbsp;&nbsp;As my husband wrote, Tynan's purpose was to show us all LOVE. Love for each other, for our children, for our communities, and for strangers, with each and everyone taking something different from our journey.&nbsp; And even though the doctors have "isnstructed" us to "keep your emotions under control, until the results are back." I know that Tynan made this journey to show those who wonder and question, THERE IS A GOD AND HE IS WONDERFUL AND POWERFUL AND HE CAN HEAL.&nbsp; Seek him and keep him close&nbsp;and your faith strong, and he will show you the way in all you do.&nbsp; See his many miracles, in Tynan.</em><br /><br /><div style="text-align: center;">We have&nbsp;a long road ahead of us still, but everything will be alright!!!!!&nbsp; </div><div style="text-align: center;"><em><span style="font-size: x-large;"><strong>Let's all P.U.S.H. together!!!</strong></span></em></div><div style="text-align: center;">(Pray Until Something Happens)</div><div style="text-align: center;"><br /></div><div style="text-align: center;">God Bless our Crusaders!!!!</div><br /><br />About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-91276739986953009972012-06-16T23:19:00.001-05:002012-06-16T23:19:48.749-05:00Back in the ERQuick update - Tynan was having severe belly pain earlier today so we loaded up and came to the ER. They confirmed what we had hoped; constipation. So now we've got that under control but his blood pressure continues to shoot through the roof. <br /><br />His blood pressure had been running up as high as 175/119 which is very much in the stroke range. We will stay overnight; maybe a couple of days until blood pressure can be controlled. <br /><br />Good night Crusaders and God Bless!!About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-46241478219482260342012-06-15T11:11:00.000-05:002012-06-15T11:11:02.047-05:00Keep Reaching for the Heavens!!!!!!!<div style="text-align: center;">KEEP THE PRAYERS COMING...............THEY ARE WORKING!!!!!!</div><div style="text-align: center;"><br /></div>On Tuesday, we drew extra labs to determine if by some miracle it was Sykora's cells that "woke up" and started fighting this fugus infection.&nbsp; Well, it was!!!&nbsp;I guess we were reaching in the right direction. Tynan's FISH test would show that Sykora has taken over again!!!&nbsp;&nbsp;Tynan is 99.4% donor cells.<br /><br />So the plan today (even though we never thought we'd be back for any type of procedure), is to take Tynan back for another bone marrow aspirate/biopsy(Monday the 18th)&nbsp;to see what his marrow looks like.&nbsp; The thinking would be that if Sykora's cells&nbsp;have spilled into his peripheral blood that she should have taken over the marrow also!!<br /><br />It's hard to get soooo excited for fear that things will go back the other way; but at the same time there is no medical explanation for any of this;&nbsp;so the&nbsp;ONLY explanation is the Power of Prayer, and our faith to believe that Tynan can be&nbsp;THAT KID, the one that makes it, no matter what medicine says; because GOD IS IN CONTROL; and HE calls the shots down here!!!&nbsp; And that's why we WILL be excited.<br /><br /><div style="text-align: center;">Thank you Crusaders for the continued prayers.</div><div style="text-align: center;">Not just for us, but for all of us, who&nbsp;compete in this rodeo circuit.&nbsp;</div><br /><h3 class="centered" style="text-align: center;"><span style="color: #3399ff;">Our Gracious and Heavenly Father,<br />We pause in the midst of this festive occasion, mindful and thoughtful of the guidance that you have given us. We would ask today, Lord, that you be with us in this rodeo arena as we pray you will be also with us in life's arena. As cowboys, Lord, we don't ask for any special favors in this arena today. We only ask that you will let us compete in this event, and in life, as You did for us. We don't ask that we never break a barrier, draw the steer that won't lay, draw around a chute fighting horse, or a bull that is impossible to ride. Help us to compete in life as honest as the horse we ride; in a manner as clean and pure as the wind that blows across this Texas country; so when we make that Last Ride, that we know is inevitable, to the Country Up There.. Where the grass is green and lush and stirrup-high and the water runs clean and clear; You will tell us, as our Last Judge, that our entry fee's are paid. We ask these things in Christ's Name.</span></h3><div style="text-align: center;"><br /></div><div style="text-align: center;">....AND IT'S BEEN ANOTHER GREAT RODEO FOLKS, THANK YOU</div><div style="text-align: center;">FOR&nbsp;COMING TO SUPPORT THIS LIL' COWBOY.......WHOOOPA!!!</div><div style="text-align: center;"><br /></div><div style="text-align: center;"><br /></div><div style="text-align: center;"><br /></div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com0tag:blogger.com,1999:blog-2279395272831773138.post-70073711113921683062012-06-12T17:30:00.001-05:002012-06-12T17:34:02.752-05:00It's deffinantley fungus, BUT we have an ANC!!!!<p>ANC is the number that tells us what Tynan's immune system is doing, and how easy he can catch an infection. Tynan's normal over the last three months or so has been 0 - 150.</p> <br /> <p>Last Friday his ANC was 520, and we were thrillled.&#160; We had not expected it to ever be over 200 again.&#160; He also blew a nasty looking "something" out of his nose, that we hoped would give us answers as to the type of fungus he had.&#160;</p> <br /> <p>As you all know, Tynan has had some really good, energy filled days.&#160; They have been a blessing, considering that a few weeks ago he would only get up to go potty. </p> <br /> <p>Today has been more than just a blessing, it's been miraculous.&#160; Tynan's ANC is at an unexplainable 1580. Yes 1,580.&#160; Not just ok, but above great!!!&#160; The CT scan we requested came back with no indication of lung disease/fungus (as opposed to the xray that did show some disease present in the lungs), nor does it show any indications on the bone in the sinus cavity.</p> <br /> <p>The doctor has ordered a FISH test. This will tell us if Sykora's cells are present, and at what %.&#160; They are thinking that it could be possible that her cells woke up with the fungus and started fighting the infection.&#160; It is a far reach, but as long as we keep reaching in the right direction; up to the heavens; I think ANYTHING IS POSSIBLE.&#160;&#160;&#160;&#160;&#160;&#160;&#160; </p> <br /> <p>My little cowboy has dreamed of being a rodeo cowboy since April 2010, and looking back I realize that he's been riding in his own rodeo circuit for 2 1/2 years. It's one of the toughest circuits on dirt. We'd like to thank each and everyone of you for following Tynan to each and every rodeo.&nbsp; </p> <br /> <p>"Sometimes you make 8; sometimes you hit dirt. Go on pin another number on the back of my shirt.."</p> <br /> <p>These are lyrics from one of Tynan's favorite songs......I encourage you to listen to it.......Texas in 1880 by Radney Foster and Pat Green.&nbsp; This song is truly about chasing your rodeo fever, but it reminds me of all the times Tynan has been bucked off only to get right back on again; and let me tell you, TODAY........HE MADE 8 BABY!!!!</p> <br /> <div style='clear: both; text-align: center; font-size: xx-small;'>Published with Blogger-droid v2.0.4</div>About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com1tag:blogger.com,1999:blog-2279395272831773138.post-50936462043356243642012-06-08T23:21:00.005-05:002012-06-08T23:21:58.011-05:00Ups and DownsAlmost two weeks ago, Tynan was so uncomfotable, and every day seemed to bring more pain and less smiles.&nbsp; He accepted few visitors and didn't get off the couch unless he needed to go potty.&nbsp; Tynan had gone from napping a couple times in the day to being&nbsp;awake a couple of hours in the day.&nbsp; He went from going to the bathroom to using a urinal.&nbsp; He'd almost quit eating all together.&nbsp; Just when we thought we'd only see him get worse,.....we are blessed once again&nbsp;with some wonderful days.<br /><br />They may not be as wonderful as they were two months ago, but they are far better than they were two weeks ago.&nbsp; He kicked the girls out of the house earlier this week so the he and dad could have some boy time. He stays up most of his day. And yesterday he asked to go "out." We went to the mall and he shopped.&nbsp; Yes, he shopped.&nbsp; We are greatful for these better days.<br /><br />Today was our regular clinic visit for blood counts and transfusions.&nbsp; Tynan has had no immune system for over two months and today his ANC was 520.&nbsp; That is great for someone who was not expected to recover his immune system and with an active fungus.&nbsp; WOW!! Where did this come from. Along with having an ANC, his platelets were not yet at transfusion levels. All his numbers were trending in the right direction.&nbsp; And he has actually put a little weight back on!!!!<br /><br />The down side of today is that 1/2 way through his antibiotic infusion, his heart rate dropped from about 102 to 52.&nbsp; We are praying tonight that this is due to the amount of fluids that were pushed through his port.&nbsp; His blood pressure also continues to be high, which may also be a contributing factor.&nbsp; <br /><br />Thank you dear Lord for these few days of smiles, motivation, and appetite.<br /><br /><br />Everyday you hear of someone else; another innocent child, another loved one, another friend; and their families&nbsp;that&nbsp;are effected by this monster they call cancer.&nbsp; To all of you, you are in our&nbsp;hearts and prayers daily. <br /><br /><em>The Lord is close to the brokenhearted and saves those who are crushed in spirit. Psalms 34:18</em><br />About Tynan's Crusadehttp://www.blogger.com/profile/11088273942437877282noreply@blogger.com1