Monday, July 5, 2010

Kids watching the fireworks.

We had a good July 4th. It was Chyanne birthday she turn 9. I just cant believe it. She was in the parade and she did a good job it was so hot.

Evan love the fireworks he was laughing and clapping, i just love to see him like that. Evan is doing okay he is eating okay. His breathing is the same. He is peeing good. He don't have no pain with his little boy part. I hope it stay like this but i know it wont.

It's going to be hot this week so we will be inside all week. That sucks. I hate staying inside and so does he.

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About Me

Im a mommy of 3 beautiful kids. My son Evan was born 9-11-08, with a rare genetic skin disorder called Epidermolysis Bullosa. Evan has change my life around. He has made me a better person. I watch my son everyday in some kind of pain, i dont no how he does it. He is strong little boy.I cherish everyday that i have with him and my girls.
My two girls are EB free.