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I have been reading this forum for a couple of months now and also CCSVI on facebook and to be perfecty honest i am fed up with reading the negitive responces from neuros in this country my father has RRMS and has done for the past 29 year, I went with him to see his neuro last monday and the bloke didnt even have the decency to show up. I am sick of hearing that more reserch needs to be done b4 the NHS can offer this treatment I dunno how many ppl in this country have had the procedure but if they could all get to gether is this not enough proof why do we have to wait for crying out loud it is clear that this procedure helps those with MS we all need to do something that is going to get this notice and we need to keep it in the press. WE NEED TO GET THIS NOTICED AND NOW AS FAR AS I AM CONCERNED IF ANTON COLLINS CAN DO IT AS a FAVOUR FOR SOMEONE IN BELFAST ON THE NHS THEN THERE HAS BEEN MORE RESERCH INTO THIS THEN THEY R LETING ON, THE NHS WOUD NOT LEAVE THEMSELVES OPEN TO SUING IF ANYTHING HAD OF GONE WRONG WHICH THANKFULY IT DIDNT. PLEASE LETS UNITE AND BRING THIS TO THE FOREFRONT WE HAVE A ELECTION COMING UP SOON LETS GET THIS NOTICED AND HOPEFULLY THESE STUPID POLITICIANS WILL JUMP ON THE BAND WAGON. PLEASE NE IDEAS WOULD BE GREATFUL. FATHERS FOR JUSTICE WHEN FIRST STARTED OUT ONLY HAD 4 MEMBERS LOOK WHAT THEY GOT NOW N EVERYONE IN BRITAIN KNOWS ABOUT THEM

you put this absolutely on the mark.
My wife(this account) has been suffering along time with PPMS.
She has her appointment on the 21st of April, will keep you up to date on how it goes
So Livabird can be counted (Northampton)
There has been concerns over people leaving the UK to have it done and was mentioned that we need to stay and fight this, but the more people that have this done with hopefully positive outcomes will help highlight to the powers in this country that it is worth while.

I must admit Dr Gilhooley seems to be in to making profits as a retired GP. However it isn't him doing the scans. He owns the clinic and has recruited a radiologist to do the work. This radiologist has been trained to look for CCSVI.

Being on their mailing list isn't enough. You have to go on the website and book and pay (£450) for a scan. I found this out yesterday.

Assuming that I have the correct Tom Gillhooley, his field of expertise was treating drug addicts and also nutriton. He became involved in LDN somehow (perhaps through a contact within a pharma company?) and has moved into treating MS. Not a neuro and not a vascular man as far as I can see.

THE DOWNING STREET PETITION WAS REJECTED DUE TO LACK OF INFO I BELIEVE. IT HAD A HIGH NUMBER OF SIGNATURES BUT IT FIGURES THEY WOULD REJECT IT. TOO BAD A PARTY DIDN'T JUMP ON THEY WOULD HAVE GOT LOTS OF VOTES. ESSENTIAL HEALTH SEEMS GOOD BUT THEY DON'T DO TREATMENT JUST TESTING. IF THEY DID TREATMENT I WOULD IMAGINE IT WOULD BE EXPENSIVE I AM GOING TO POLAND APRIL 20. I FEEL MORE CONFIDENT GOING SOMEWHERE THAT HAS BEEN DOING IT FOR A WHILE. HOPEFULLY THIS COUNTRY GETS FULLY INTO IT BUT I WON'T HOLD MY BREATH.

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