Wednesday, 26 December 2012

Two days ago, i had finished watching a Japanese drama. Wallah. It brought me into a tan of tears. Actually, i found so much advice from this drama. The title of this drama is Kioku- 1 litre of Tears. It was adapted from a real story.

Ever heard about Spinocerebellar Degeneration disease ?

Is there a cure for this disease ?

Best Answer.There is no known cure for spinocerebellar ataxia, which is a progressive disease (it gets worse with time), although not all types cause equally severe disability. Treatments are generally limited to softening symptoms, not the disease itself. The condition can be irreversible. A person with this disease will usually end up needing to use a wheelchair, and eventually they may need assistance to perform daily tasks. The treatment of incoordination or ataxia, then mostly involves the use of adaptive devices to allow the ataxic individual to maintain as much independence as possible. Such devices may include a cane, crutches, walker, or wheelchair for those with impaired gait; devices to assist with writing, feeding, and self care if hand and arm coordination are impaired; and communication devices for those with impaired speech. Many patients with hereditary or idiopathic forms of ataxia have other symptoms in addition to ataxia. Medications or other therapies might be appropriate for some of these symptoms, which could include tremor, stiffness, depression, spasticity, and sleep disorders, among others. Both onset of initial symptoms and duration of disease can be subject to variation. If the disease is caused by a polyglutamine trinucleotide repeat CAG expansion, a longer expansion may lead to an earlier onset and a more radical progression of clinical symptoms. From, Dr.arke at the childrens hospital

It is about Ikeuchi Aya, 15 years old girl who was jus attending her high school. But she was found to get this disease. Her mother realised a weird things had happened to Aya. Because she is always fall and cannot hold chopsticks rightly.Within this disease, she cannot play basketball anymore. Not long after that, she can't walk anymore. She also always chock whenever she is eating. Then,no more words can be hear from her mouth. Everytime she want to talk, she will pointing her finger to the Japanese alphabet plank that being prepared by Dr. Mizuno. Everyday she will write her diary. When she was at the school for those who disabled, people who read her writing so inspired due to her writing. Yet, a man who work as a volunteer there would like to include her writing in his book. Aya give permission happily as she know that she still be able to do something.Her okaasan (mother) is one of those who are really supporting her. calming her. I really feel that sadness deep inside. How much her okaasan love her you can see through this drama. Like a real one. Haruto, her classmate that lose his niisan (older brother), make him choose to be as a medical student due to her uncurable disease. Haruto want to save another person who got to have that disease too. Lastly, Aya-chan died on the hospital bed. At her burial day, about an ocean of human come to visit her grave. Because all of them read Aya's writing and amazed her. And also because of her inspiring words that never giving up her life. (Akira Mina-Dont give up)

“My life is like a flower that hasn't bloomed yet.from the start of this youth, I want to treasure it and have no regrets.”

P/S - I hope that I can go to Makkah, Madinah, Palestine and Egypt soon in this young age. I want to view the monument, the past history there. Please pray for me those who read my bloggy. Allahumma Aamiin.