Friday, October 11, 2013

It's In...

Our surgeon was running behind today,

Lucy waited patiently for him,

and then fell asleep.

Lucy is the proud owner (whether she likes it our not) of a brand spanking new 7fr double lumen central venous catheter placed in her left subclavain vein. In other words, she has a brand new line coming out of the left upper quadrant of her chest with two points of access. Our surgeon, whom by the way we love, love, love, reluctantly took out, in his opinion, the perfectly placed PICC line. Perfectly placed if you don't ever want to wear pants, that's what I told him. He was a good sport about the whole thing. He can be so stubborn, but then again so can I. Seriously, the jokes and sarcasm have been flying around here all day, it definitely helped to lighten the mood which is always welcome when your child is in the operating room.

Luc is a bit cranky and tired, she tends to wake up from anesthesia on the wrong side of the bed, and she did just that. We are going to let her sleep it off for a while. I am however packing us up, we are going home tonight! The doc at Hopkins who placed Lucy's stent is out of the office for the next few weeks. When he returns we will have to make arrangements to go back down to Hopkins for another ERCP to clean out the debris in her biliary stent. As for now we are going to go home and resume living life.

Thanks for your thoughts and prayers, love and support!

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FOR THE LOVE OF LUCY RESEARCH FUND

In loving memory of Lucy Grace Marlett, the bravest five-year-old girl we know. Please help us to find a cure for Mitochondrial Disease by clicking on the image and donating to the "For the Love of Lucy Research Fund" established by her family and the UMDF. Thank you for your love and support!

ENERGY FOR LIFE WALKATHON

UNITED MITOCHONDRIAL DISEASE FOUNDATION

We are All the Marletts, a family of six trying to live life to its fullest! My husband and I fell in love at a young age and dreamed of being married, having a family, and growing old together… Even though our life is what we hoped it would be, we could never have imagined what GOD had in store for us along the way. Being parents to four remarkable kiddos has proven to be MORE in every way! When our youngest was born, although we didn’t know it right away, we were given the privilege and challenge of raising a “special child”, a medically complex child. Since starting this blog, Lucy has been diagnosed with Mitochondrial Disease, a progressive degenerative disease of energy metabolism. Even though this is a blog about our life as a family, I write often about Lucy’s medical issues. If you care to read about the trials and tribulations of raising four children, the joys and hardships of our family life, the emotional roller coaster ride that raising a medically complex child puts one on, and the love that pours from my heart onto the pages of this blog then…welcome!