There are a lot of conditions that no one knew about 50 years ago, yet today, are in almost every Americans vocabulary. These conditions, the ones that get the publics attention, seem to receive the most attention and research dollars in the scientific community. We think its important to get Dandy-Walker Syndrome and Hydrocephalus on that list. You’ve heard the old saying, “The squeaky wheel gets the grease”. Lets be that squeaky wheel!

We will update the list above as we get more and more states involved.

If you make a request, or hear back on a request you’ve already make please let us know so we can keep this list current for everyone. Thank you all for everything you do to help the Dandy-Walker Community!

Please consider making a contribution with our secure online credit card donation form