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286 Visitor Messages

Good morning, i know about the delexis (sp) have it most of the time worse when typing. my boyfriend gets a kick about when i am speaking, i couldn't get comfortable one nite and he said whats wrong i said pillows cant get comfortable not i can't. i take folic acid too now and going back for more blood work next week to check all vitamins, my hair falls out like yours its just real thing now. suppose to go to orioles game sat. hope i can last that long, i hate baseball i am redskins fan. had to sell season tickets missed to many games. have agreat weekend. talk to you monday.xoxo

WOW! You're an amazing person! I'm glad to know you're doing better. I worked at a children's hospital and loved it! There was absolutely nothing more rewarding than working with sick kiddos! Are you still in school? You're so lucky to have such a great mom and close family to help support you! My parents don't even know about my illnesses yet. I don't think I'll ever tell them. We're not close at all and we don't talk much. They don't spport me, financially, psychologically or emotionally. It sucks, the only person that's here for me is my boyfriend and I'm so blessed for him. I'm just so scared that he'll leave me for someone healthier. He says he'll never leave me, I hope he's telling the truth because I don't know what I'd do alone. Anyway I'll stop babbling for now. Have a great day. I'm feelng a little better than I was earlier in the week. I had a test today in class over pedi's and neonates and I passed! YAY! Anyway talk at ya later!

Hi Ashley! WOO HOO to GOOD weather! Its getting nicer here in Ohio too! It helps the mood huh! Glad you can enjoy the warmth too!! Im doing better today,its sunny so thats a nice pick-me-up! You take care hun and stay that strong and beautiful girl you are!!!! XXXXXXXXXXXXXXXX

Hi im ok thanks.Very drugged up all the time but dont care helps the pain lol.How are you? What animals have you been working with lately? Hope the cheering been fun too!Im off to see Girls Aloud tomorrow in concert,my friend has surprised me with tickets yipeeeeeee.xxxxxxxxx

I take tramadol for pain, won't take the steroids or plaquenil. they want me to take the plaq. but it made me so sick the first time don't want to try it yet. i am now mostly fatigue hair loss bad, swollen feet and hands protein in urnine blood also, need to go to uri. doc first ct scan said kidney stone. when i got real sick in 05, was in hosp. three times dehydration. pancreas wasn't working right couldn't keep food down, rash on chest, swollen glands in back of neck and head wierd. when they swell up i know something wrong. fatigue most of the time or can't sleep. nausea some times and now i think i have raynauds have to keep journal for doc. it just goes on and on but i think positive every day and it helps most of the time. what symptoms do you have. oh brain fog bad

Hi Ashley! Ive had a few rough days but Carl has made me rest when it starts to come on, hes my angel who watches over me! Its hard to slow down when you've gone full speed ahead your whole life! Im learning, slowly but surely!! Glad you're well honey! Take care of yourself! XXXXXXXXXXXXXXXXX

Basic Information

Date of Birth

July 15

About ashleybaby715

Biography:

I'm Ashley! I'm 21 years old. I am currently a senior at the University of Pittsburgh striving for a degree in Psychology with a minor in Theater. I'm hoping to become a Child Life Specialist post graduation. I was diagnosed with SLE on January 12th, 2009. I'm living 5 years strong with it. I may have Lupus, but it certainly doesn't have me!

Location:

I live in Pittsburgh, PA!

Interests:

I love just being happy. I love to hang out with my friends and I absolutely love musical theater.

Recent Entries

WOW so i haven't done a blog in forever!!!!!
i've been soo busy working and living up my summer!! ahahah
its been amazing so far!!!
and im soo soo excited because TOMORROW IS MY BIRTHDAYYY!!! yayyyyyy!!!!!!!!!!!!!!!!!!
so thats gonna be fun!
i can't waitt ! haha
and then on the 25th, is the jonas brothers concert! yayyyyyyyyyy!!!!

Heyy Everyone! Happy JUNE! i can't believe its alreadyyy this month! time is going by soo fast! ughh! haha

only two more weeks of school, and i am done! yayy! !
but now the biggest things of the year are coming up.
i present my grad project, which is soo big because it determines if i'll graduate next year or not, [[ well that and my grades of course...haha]]
and then next week, i have finals. blahhh
the thing i dread the most. but then its summer vacation!!

Heyy Everyone! so i'm pretty excited today. i'm going to kennywood with my physics class for physics day! its alot of fun there, especially when you go with your friends! but mann my morning did not start off good. i brought a bottle of water with me into school because my mom told me to, so i dont get dehydrated at kennywood cuz its supposed to be pretty warm today. so i brought it in, and usually they don't say anything to me, but today they took it from me and THREW IT AWAY! because teq. we're

Heyy Everyone!
i hope you all have been doing ok! i've been pretty good, except for this stupid sore throat that i have! i've had it since yesterday and its bothering me sooo much! my voice sounds soo scary! haha
it better go away, because i have a pretty busy week! between trying to finish up my graduation project, going on school trips, and everything else, i dont have time to be sick! haha

im soo excited because on thursday me and my mom are going to this meeting

Heyy Everyone!
i hope all you moms on here had a GREAT mothers day!
wow i had a crazy day at work! i was surprised with Reception Desk training. it was definetly a BIG change from what i usually do! it was soo confusing and pretty overwhelming, but it was cool. i was incharge of the zoo kinda! but i had help of course.
i kept having lupus issues tho! like relaying numbers and such, i kept mixing them up!! but it was ok. they understood. hahah
i feel really priveledged