Living a long and happy life in spite of having ALS/Lou Gehrig's disease

#greysanatomy

Find something to look forward to, a reason to get out of bed in the morning. It can be literally anything. It can be easier to keep yourself going through the hard days if you have something to look forward to, something you want to do or see. Something you don’t want to miss out on.

For me, the biggest thing has been my kids. When a doctor told me I had only a few years left to be with my family, I said, no (in my mind). I didn’t want to miss out on seeing my kids grow up. I just kept planning and looking forward to our lives like usual, only more so.

But it’s not just the big things that keep you going, it’s the little things too. Like planning on taking a vacation. Or maybe something as small as a new coffee frappuccino coming out at Starbucks next month. Something to actively plan for and look forward to.

My daughter got me to read one of the Harry Potter books, and that instantly gave me another thing to look forward to. I couldn’t wait to read the next book in the series, and the next, and the next, until I had read them all. And then there were the films based on the books to see and to look forward to. My ALS just had to slow down because I wasn’t going anywhere until I had seen all of the Harry Potter movies! I saw them all. That’s when the Powers That Be/God, lead me to Shonda Rhimes. Also known as the creator of some of the best shows on TV, and you guessed it, another reason for me to hang in there for one more season of, “How To Get Away With Murder “, “Scandal “, and “Grey’s Anatomy”. I’m not gonna miss out on what happens with Merideth Grey because of ALS! Ok, I am not saying that all you have to do to keep going when dealing with a serious illness is to find something to look forward to …but, focusing on something besides your illness is a huge piece in the puzzle. I am looking forward to seeing Alice Cooper in concert this summer, I don’t want to miss that. And on and on it goes. I am just going to keep on keeping on, and finding new things, both big and small, to look forward to for as long as I possibly can.

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