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On the morning of May 18th around 7:15 I attended cardiac rounds outside of Abel's room like we do every morning. I expected there to be no new updates so I didn't record it like I normally do. They started presenting Abel's case talking about his Continue Reading »

After sixteen days in the hospital, we finally have a plan. The doctors have been going back and forth on how to approach Abel's failing heart. When we first heard the words "heart failure" and "transplant" we were completely shocked. Abel looks Continue Reading »

The surgeons decided overnight that they want to fix the leaky valve so we can get Abel in a stable place rather than watch, wait and worry in the months ahead. The procedure should take a few hours and he should only be on bypass for less than an Continue Reading »

Jason and I came to the hospital today with no other expectations than another exhausting day in the cardiac waiting room. We were shocked to hear that the surgeons had decided against surgery for now and are going to try fluids and an alternative Continue Reading »

Abel will be going back in for surgery tomorrow. He has a leaky valve that is sending blood to his lungs making it impossible to control his oxygen saturations. Although we knew about the valve we did not think it would lead to another surgery Continue Reading »

I find myself hesitating to update because I may be a little bit superstitious. Abel is doing so incredibly well and quite frankly, surprising everyone. He recovered quickly from his collapsed lung but it's still keeping him here in the PICU Continue Reading »

As many of you may know, we found out at 20 weeks into our pregnancy that our precious baby boy has a congenital heart disease called Hypoplastic Left Heart Syndrome (HLHS). This rare defect will require a set of three surgeries before the age of 4 Continue Reading »

Contributions to COTA are used to assist the organization to help children and young adults who need a life-saving transplant. COTA allocates funds raised in honor of patients to families who have a documented financial need related to the transplant.