Monday, August 9, 2010

M I C K E Y

Meet Davy's new friend, Mickey.We got rid of her rubber jump rope, and I say good riddance. This is how our day went down.....

Last night Davy had to stop eating at 1am.

Left for the hospital at 6:15am

Did all the boring paperwork to admit her.

Then we discussed with the nurse about her heart and adrenal issues. We also informed her how Davy is a "hard stick" when it comes to IVs. I don't think she believed me though. 3 sticks and 2 nurses later her IV was in. She only cried after the first jab, then she just layed still while giving her nurse the stink eye. What a pro. The poor thing had to be starving by now, but she was still pretty calm. I was so impressed with how strong she was. It was like she was trying to calm me down.

We wheeled her into the operating room and held her hand as they put her under. She looked so small on her gurney. I know she will have many more surgeries, but I never think I'll get used to seeing my Davygirl lay so lifeless. It just makes you sad.

Then we had to leave and go to the waiting room(not an easy thing to do), but luckily we didn't have to wait long.

Davy's surgery took about.......20 minutes. They even checked her esophagus to make sure her reflux isn't destroying it. The Doctor said it looked beautiful. She even gave us a picture, cuz who doesn't want a picture of your baby's esophagus.

She woke up and was pretty bummed out, that didn't last too long though. She was smiling within 10 minutes.

The anesthesiologist told us that he was able to intubate her, but because the surgery was so fast that it was OK. But for future surgeries they will need to know this ahead of time. So I guess it was good thing we had the 20 minute practice surgery before her cleft surgeries.

Finally at 12pm we were able to feed her. I am so amazed she wasn't screaming with hunger, cuz Scott and I were starving. We took her home and we all three crashed for a couple of hours. She's been a little cranky, but way better then I would expect from a baby who just had surgery. 2 surgeries down, a bunch more to go.

9 comments:

Phew! I am glad that it went well. They NEVER believe me when I tell them about Della being a hard stick either. Why is that? Are other moms just making it up and saying the same things. Last time Della's IV came halfway out and was bleeding everywhere. That's great news about the reflux and Mickey looks a whole lot easier to handle.

Davy's medical History

I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.

Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.