Cerebral Palsy

My daughter Camryn just had her 6 month followup appointment with her neurologist this past Friday, Oct. 2, and his diagnosis was that she is showing signs of Cerebral Palsy. She has been seeing an occupational therapist once a week for the last 4 - 5 months. Her doctor told us as long as we keep doing her therapy, the better the outcome will be when she's older. He also wanted us to register her with Shriner's Hospital.

Has anyone gone through this? Is there hope for her to be normal or close to it?

Your help would be appreciated.

Thanks, Jessica

Hi All,

My daughter Camryn just had her 6 month followup appointment with her neurologist this past Friday, Oct. 2, and his diagnosis was that she is showing signs of Cerebral Palsy. She has been seeing an occupational therapist once a week for the last 4 - 5 months. Her doctor told us as long as we keep doing her therapy, the better the outcome will be when she's older. He also wanted us to register her with Shriner's Hospital.

Has anyone gone through this? Is there hope for her to be normal or close to it?

When we first started the physical therapy we just knew he was dev. delayed but nothing else. But once he started having seizures at 8 months and saw the Neurologist, she is the one that referred us to get a full evaluation. Once we did that it was clear that he needed to start all of the therapies. So maybe talk to your dr. about having a speech and OT evaluation. I noticed in the pics you have that her hands are still closed. It took Sean tons of OT therapy to get him to open up his hands etc. Keep asking your little life away. I wish I had someone to talk to when I was going through all of this. It is very scary to be in the unknown and to start hearing that all of these different things are wrong with your little one. But you are doing an amazing job momma, it sounds like you are on top of things and trying to figure out what you need to do to help your little girl :)

Yes, our pictures are from the cruise we did in June. We had an AMAZING time!! We went on the Liberty of the Seas, what a great ship! The boys had a blast! I live in south florida, so it is easy for us to do our vacation on cruises ;)

When we first started the physical therapy we just knew he was dev. delayed but nothing else. But once he started having seizures at 8 months and saw the Neurologist, she is the one that referred us to get a full evaluation. Once we did that it was clear that he needed to start all of the therapies. So maybe talk to your dr. about having a speech and OT evaluation. I noticed in the pics you have that her hands are still closed. It took Sean tons of OT therapy to get him to open up his hands etc. Keep asking your little life away. I wish I had someone to talk to when I was going through all of this. It is very scary to be in the unknown and to start hearing that all of these different things are wrong with your little one. But you are doing an amazing job momma, it sounds like you are on top of things and trying to figure out what you need to do to help your little girl :)

Yes, our pictures are from the cruise we did in June. We had an AMAZING time!! We went on the Liberty of the Seas, what a great ship! The boys had a blast! I live in south florida, so it is easy for us to do our vacation on cruises ;)

We also did some shopping this weekend and found some items to work with Camryn's eyes. I haven't heard back from Shriner's yet. I guess I'll give them a couple more days before I call again. I was having "one of those days" last night. Sometimes I get a bit frustrated knowing that Camryn is delayed and seeing other babies her age advancing. I want to see her advance too! My husband thinks she is doing just fine. I know I shouldn't compare her to other babies, but sometimes it's hard not to. I know that Camryn will get there in her own time. It's just frustrating not knowing how long it will take.

I had a wonderful b-day. Pizza and ice cream. Yummmmm.

We also did some shopping this weekend and found some items to work with Camryn's eyes. I haven't heard back from Shriner's yet. I guess I'll give them a couple more days before I call again. I was having "one of those days" last night. Sometimes I get a bit frustrated knowing that Camryn is delayed and seeing other babies her age advancing. I want to see her advance too! My husband thinks she is doing just fine. I know I shouldn't compare her to other babies, but sometimes it's hard not to. I know that Camryn will get there in her own time. It's just frustrating not knowing how long it will take.

May I say, you are amazing! Having so much patience. I know I am still learning to help my baby girl, and at times it can be frustrating, but chatting with you helps so much more than you know. Thank you.

Camryn is a little cutie. Her smile still makes me melt. Her pediatrician has been wanting her to come in and get vaccinated for the H1N1, but she caught another cold and has another ear infection, so vaccination will need to wait. We also found out on the news last night that the vaccines for the H1N1 has been recalled for children because they're not strong enough. Maybe that's why the kids school pushed back their vaccinations. I am still debating if I will get the shot. I know you said your DH didn't want to get vaccinated with the H1N1, what about you and the kids?

Have a wonderful time on your trip to the mountains. You must be really busy getting ready to go. If we don't chat again soon, have a great Christmas and New year.

May I say, you are amazing! Having so much patience. I know I am still learning to help my baby girl, and at times it can be frustrating, but chatting with you helps so much more than you know. Thank you.

Camryn is a little cutie. Her smile still makes me melt. Her pediatrician has been wanting her to come in and get vaccinated for the H1N1, but she caught another cold and has another ear infection, so vaccination will need to wait. We also found out on the news last night that the vaccines for the H1N1 has been recalled for children because they're not strong enough. Maybe that's why the kids school pushed back their vaccinations. I am still debating if I will get the shot. I know you said your DH didn't want to get vaccinated with the H1N1, what about you and the kids?

Have a wonderful time on your trip to the mountains. You must be really busy getting ready to go. If we don't chat again soon, have a great Christmas and New year.

Thank you. Alyssa has been with eci since coming home from the nicu, and she also goes to outpatient therapy!!! She also has very limited speech. She is still in the hospital. Still doing what she does. I am hoping the developmental pedi can help cause, there are things that everyone has noticed that she has a lot of autistic tendicies, but don't go past that. I am concerned cause I want to get her the help she needs. We don't see neurology as of right now, but didn't know if we needed to to figure out what is going on with her!!!!

Thank you. Alyssa has been with eci since coming home from the nicu, and she also goes to outpatient therapy!!! She also has very limited speech. She is still in the hospital. Still doing what she does. I am hoping the developmental pedi can help cause, there are things that everyone has noticed that she has a lot of autistic tendicies, but don't go past that. I am concerned cause I want to get her the help she needs. We don't see neurology as of right now, but didn't know if we needed to to figure out what is going on with her!!!!

It is awesome that she is rolling in both directions now. I remember when we first started talking she was having issues with that. And how cool that she is trying to push herself with her legs. Those are all very good signs momma!! Keep up the good work. And so what if she rolls around in the floor, just shower her before bedtime and it is like nothing ever happend LOL! The more exposure she has to the floor, the better it is :)

It is awesome that she is rolling in both directions now. I remember when we first started talking she was having issues with that. And how cool that she is trying to push herself with her legs. Those are all very good signs momma!! Keep up the good work. And so what if she rolls around in the floor, just shower her before bedtime and it is like nothing ever happend LOL! The more exposure she has to the floor, the better it is :)

What's involved in a full evaluation? We are still waiting to hear from Shriner's, I think I might end up calling them today to see if we can set up an appointment. We live in Hilo which is on the Big Island in Hawaii. Shriner's is in Honolulu. Every time Camryn needs to see one of her specialists, neurologist, geneticist or eye doctor, we have to fly to Honolulu. Shriner's comes to Hilo twice a year, however, when I called about her application last week, they told me that the chief of staff wanted to see her within one month. Looks like we'll be flying to Honolulu again.

I did talk to her occupational therapist last night when she came to go over exercises for Camryn. She said that she doesn't feel like Camryn needs more therapists yet and that they will be doing an evaluation next month and will determine at that time if more help is necessary.

It's so cool that you get to go on cruises. Are you close to Disney World also? We went to Disneyland last year during Spring Break and my girls had a blast. (Okay, my husband and I loved it too!) My husband and I went to Disney World for our honeymoon (which feels like such a long time ago!) and I would love to take our daughters. Maybe when Camryn turns five.

What's involved in a full evaluation? We are still waiting to hear from Shriner's, I think I might end up calling them today to see if we can set up an appointment. We live in Hilo which is on the Big Island in Hawaii. Shriner's is in Honolulu. Every time Camryn needs to see one of her specialists, neurologist, geneticist or eye doctor, we have to fly to Honolulu. Shriner's comes to Hilo twice a year, however, when I called about her application last week, they told me that the chief of staff wanted to see her within one month. Looks like we'll be flying to Honolulu again.

I did talk to her occupational therapist last night when she came to go over exercises for Camryn. She said that she doesn't feel like Camryn needs more therapists yet and that they will be doing an evaluation next month and will determine at that time if more help is necessary.

It's so cool that you get to go on cruises. Are you close to Disney World also? We went to Disneyland last year during Spring Break and my girls had a blast. (Okay, my husband and I loved it too!) My husband and I went to Disney World for our honeymoon (which feels like such a long time ago!) and I would love to take our daughters. Maybe when Camryn turns five.

I know it is really hard not to compare Camryn to other babies her age but try really really hard not to. It will just frustrate you, make you anxious and just get you sad about what is going on. Instead focus on the small things she accomplishes. As long as she is learning new things, even if it is at a much slower pace, she is learning. It took me a long time to come to term with that concept. Specially now that Sean is in school. I was getting really sad on how far behind he was falling but you know what, he is learning little by little. So someday, he will learn how to write and someday he will learn how to read. When he is 30 will it matter if he learned at 5 or at 8?? No, not really. So just try really hard to focus on the positives, it really helps you deal with things. And for some reasons husbands take alot longer to realize that something is wrong and then they go through a huge denial phase until they finally start to realize it and accept it. Have a child with dissabilities could really put extra pressure on the marriage. So have tons of patience :)

I know it is really hard not to compare Camryn to other babies her age but try really really hard not to. It will just frustrate you, make you anxious and just get you sad about what is going on. Instead focus on the small things she accomplishes. As long as she is learning new things, even if it is at a much slower pace, she is learning. It took me a long time to come to term with that concept. Specially now that Sean is in school. I was getting really sad on how far behind he was falling but you know what, he is learning little by little. So someday, he will learn how to write and someday he will learn how to read. When he is 30 will it matter if he learned at 5 or at 8?? No, not really. So just try really hard to focus on the positives, it really helps you deal with things. And for some reasons husbands take alot longer to realize that something is wrong and then they go through a huge denial phase until they finally start to realize it and accept it. Have a child with dissabilities could really put extra pressure on the marriage. So have tons of patience :)

hi i am another hijacker, sorry. i had a few questions. well i had read a while back that if a baby kicks their legs together at the same time instead of the regular bicycle fashion that it may mean cb. my daughter will be five months on april 5th and i have noticed when she is on jer changing table thing,(the one on the pack n play) that she kicks her legs at the same time, almost like she is pushing off a wall. there is a lil flap that she can kick but im still worried. my bf thinks im crazy b/c she does do the bicycle kick like in her bouncy seat but man on that changing pad she is obsessed with kicking it! i asked her dr months ago about cp and she said to stop worrying that she seemed fine, but she was only like two months then so i dont know if she would catch it. what do you girls think? thanks in advance?

hi i am another hijacker, sorry. i had a few questions. well i had read a while back that if a baby kicks their legs together at the same time instead of the regular bicycle fashion that it may mean cb. my daughter will be five months on april 5th and i have noticed when she is on jer changing table thing,(the one on the pack n play) that she kicks her legs at the same time, almost like she is pushing off a wall. there is a lil flap that she can kick but im still worried. my bf thinks im crazy b/c she does do the bicycle kick like in her bouncy seat but man on that changing pad she is obsessed with kicking it! i asked her dr months ago about cp and she said to stop worrying that she seemed fine, but she was only like two months then so i dont know if she would catch it. what do you girls think? thanks in advance?

Thank you girl, you are a sweetie and I am glad we have gotten to know each other better. We can lean on each other when stressful situations come our way. Originally I gave all of the boys the regular flu shot (Ethan still needs his second round) and then the neurologist insisted that we give Sean the H1N1 shots since he is at higher risk of developing complications. So Sean and Kevin both got the H1N1 in school. I think I am going to give Ethan the second round of the regular flu shot when we get back from vacation and probably not do the H1N1 on him. I got the regular Flu shot but not the H1N1. DH didnt get either, he doesnt like shots LOL! I hope you have a great weekend girl! I will be here Monday - Wednesday next week and then off we go :)

Thank you girl, you are a sweetie and I am glad we have gotten to know each other better. We can lean on each other when stressful situations come our way. Originally I gave all of the boys the regular flu shot (Ethan still needs his second round) and then the neurologist insisted that we give Sean the H1N1 shots since he is at higher risk of developing complications. So Sean and Kevin both got the H1N1 in school. I think I am going to give Ethan the second round of the regular flu shot when we get back from vacation and probably not do the H1N1 on him. I got the regular Flu shot but not the H1N1. DH didnt get either, he doesnt like shots LOL! I hope you have a great weekend girl! I will be here Monday - Wednesday next week and then off we go :)

Camryn did very well at her last therapy session. She was using her right hand more and her vision seems to be improving. She is using her legs more, which is great! I can't wait till she actually goes up on her knees and goes!

Just three more weeks and she turns one! I am definitely starting to stress about this party! Invites still need to go out, boxes need to be printed, cut out and put together! And we still need to fill the bags with candy to put in the boxes. We also need to do the centerpieces, order the food, etc... Busy, busy, busy! There should be 8 days in a week, so we can have 3-day weekends! LOL

Camryn did very well at her last therapy session. She was using her right hand more and her vision seems to be improving. She is using her legs more, which is great! I can't wait till she actually goes up on her knees and goes!

Just three more weeks and she turns one! I am definitely starting to stress about this party! Invites still need to go out, boxes need to be printed, cut out and put together! And we still need to fill the bags with candy to put in the boxes. We also need to do the centerpieces, order the food, etc... Busy, busy, busy! There should be 8 days in a week, so we can have 3-day weekends! LOL

He was being followed by the Early intervention program because he was Dev. Delayed. He started getting therapy together with a Developmental Specialist that would come once a week. As he got older we started to see more and more autistic traits together with lack of speech. They did an autism evaluation and he scored well within the spectrum. He started ABA therapy which is geared towards autism and added OT therapy and increased the speech therapy. We also see a Neurologist that has officially diagnosed him with autism. I am glad the therapist noticed it early on and we have been able to work with him on things for 6 months. He has gotten better on tons of things but we still have to continue to work hard with him. He is two and just recently started saying mama and dada. Those are the only two words in his vocabulary right now. We are planing to place him in a special school program once he turns 3. The neurologist told us that will be when he hopefully starts blosoming. How is Alyssa doing? Is she out of the hospital yet?

He was being followed by the Early intervention program because he was Dev. Delayed. He started getting therapy together with a Developmental Specialist that would come once a week. As he got older we started to see more and more autistic traits together with lack of speech. They did an autism evaluation and he scored well within the spectrum. He started ABA therapy which is geared towards autism and added OT therapy and increased the speech therapy. We also see a Neurologist that has officially diagnosed him with autism. I am glad the therapist noticed it early on and we have been able to work with him on things for 6 months. He has gotten better on tons of things but we still have to continue to work hard with him. He is two and just recently started saying mama and dada. Those are the only two words in his vocabulary right now. We are planing to place him in a special school program once he turns 3. The neurologist told us that will be when he hopefully starts blosoming. How is Alyssa doing? Is she out of the hospital yet?

Hey momma, for some reason I did not see your last post. I hope all of your girls are nice and healthy by now. I was also afraid for a long time with Sean. When ever he would get a fever he would have a seizure. It was horrible. That finally stopped when he was around 4, now he could have a fever without a problem :) Congrats on Camryn rolling over, that is great news! Sean starting rolling over around that age and now he runs around :) Sounds like you have a busy visit to Honolulu. Just as an FYI EEG's could be deceiving. Sean got a few "normal" EEG's even though he was having seizures. He also got abnormal ones but if he was a kid that only had one and it was normal then you would think he had no seizures. I am glad the therapists are going to continue working with Camryn, that really helps! Good luck on your test, just study study study and don't give up :) We had an amazing vacation! It was great quality family time :) Now we are back to the craziness of work, school and housework LOL!

Hey momma, for some reason I did not see your last post. I hope all of your girls are nice and healthy by now. I was also afraid for a long time with Sean. When ever he would get a fever he would have a seizure. It was horrible. That finally stopped when he was around 4, now he could have a fever without a problem :) Congrats on Camryn rolling over, that is great news! Sean starting rolling over around that age and now he runs around :) Sounds like you have a busy visit to Honolulu. Just as an FYI EEG's could be deceiving. Sean got a few "normal" EEG's even though he was having seizures. He also got abnormal ones but if he was a kid that only had one and it was normal then you would think he had no seizures. I am glad the therapists are going to continue working with Camryn, that really helps! Good luck on your test, just study study study and don't give up :) We had an amazing vacation! It was great quality family time :) Now we are back to the craziness of work, school and housework LOL!

Thanks. I know I need to accept what Camryn is going through and be patient. I know that she is learning, even if it is at a slower pace. And everytime she looks at me with those big brown eyes, my heart just melts. Sometimes my mind kicks into overdrive and I need to curb the "what ifs". Wow, you seem really strong. I'm glad you're there to talk to. It really helps.

Our occupational therapist had us make a white box for Camryn to work with her eyes. It seems to be helping with her focusing. How old was Sean when he started making eye contact? Was that ever an issue? I noticed when Camryn is looking at one of the ribbons we got her to focus on, her eyes follow to one side, then its as if one of her eyes keeps going a little further. I need to call her OT and let her know.

Thanks again for the encouragement.

Thanks. I know I need to accept what Camryn is going through and be patient. I know that she is learning, even if it is at a slower pace. And everytime she looks at me with those big brown eyes, my heart just melts. Sometimes my mind kicks into overdrive and I need to curb the "what ifs". Wow, you seem really strong. I'm glad you're there to talk to. It really helps.

Our occupational therapist had us make a white box for Camryn to work with her eyes. It seems to be helping with her focusing. How old was Sean when he started making eye contact? Was that ever an issue? I noticed when Camryn is looking at one of the ribbons we got her to focus on, her eyes follow to one side, then its as if one of her eyes keeps going a little further. I need to call her OT and let her know.

I just thought I would say hello. My 6 month old Mason doesn't have Cerebral Palsy exactly but he has low muscle tone which is likely due to a cyst on the cerebellum of the brain (Dandy-Walker Syndrome). I suppose this can be considered a form of Cerebral Palsy, though none of the doctors have refered to it as such. There doesn't seem to be anyone else on this board with a similar diagnosis (at least that I can find). We still are awaiting an MRI and meeting with a Geneticist to get an official diagnosis.

Despite the low muscle tone, he has been able to roll over and lifts his head to 90 degrees during tummy time but I think sitting is going to take some time. It is really only his gross motor skills that are delayed. He has started some occupational therapy and is awaiting an appointment at a Rehabilitation Centre to start a therapy program. It is hard not knowing what to expect. I hope your daughter is doing well...she is so cute!

I just thought I would say hello. My 6 month old Mason doesn't have Cerebral Palsy exactly but he has low muscle tone which is likely due to a cyst on the cerebellum of the brain (Dandy-Walker Syndrome). I suppose this can be considered a form of Cerebral Palsy, though none of the doctors have refered to it as such. There doesn't seem to be anyone else on this board with a similar diagnosis (at least that I can find). We still are awaiting an MRI and meeting with a Geneticist to get an official diagnosis.

Despite the low muscle tone, he has been able to roll over and lifts his head to 90 degrees during tummy time but I think sitting is going to take some time. It is really only his gross motor skills that are delayed. He has started some occupational therapy and is awaiting an appointment at a Rehabilitation Centre to start a therapy program. It is hard not knowing what to expect. I hope your daughter is doing well...she is so cute!

My oldest, Cassie, also hates shots. She gets the nasal mist for the flu. She is scheduled to take the nasal mist for the H1N1 in January. My DH wants to make sure she stays away from Camryn when she gets the nasal mist, since it does have live cultures in it. Camryn caught another cold! Just when we thought it was over, it starts all over again! Chelsea, my second, caught it this past weekend and has shared her germs with her sister. Thank goodness Camryn didn't get the fever Chelsea did. I get really scared when Camryn's temperature goes up. Especially after her seizure and being told that a high fever may trigger another seizure. I hope my girls are back to normal by Christmas. They are getting so anxious to open their presents! (Me too!)

We have a very busy couple of days coming up. Our usual routine every year. On Christmas Eve, I work half a day, then my boss takes us to lunch. Then it's to my Grandma's house to sing happy birthday and have cake and ice cream. Then we go home and get ready for dinner at my mom's. After dinner we head to my in-laws to open presents.

Christmas Day, we try and wake up early to open presents at our house. Then we go to my mom's and open presents there. Then we will head to DH's Aunty's house (about an hour away) for lunch. Then back to my Aunty's house (about 30 min. away from home) for dinner. Very very busy! Next year it WILL be at our house for lunch! We end up so tired by the time we get home! Oh, did I mention, in between all of the going out and opening presents, we still need to cook one main dish and two desserts.

Have a wonderful trip! Merry Christmas!

My oldest, Cassie, also hates shots. She gets the nasal mist for the flu. She is scheduled to take the nasal mist for the H1N1 in January. My DH wants to make sure she stays away from Camryn when she gets the nasal mist, since it does have live cultures in it. Camryn caught another cold! Just when we thought it was over, it starts all over again! Chelsea, my second, caught it this past weekend and has shared her germs with her sister. Thank goodness Camryn didn't get the fever Chelsea did. I get really scared when Camryn's temperature goes up. Especially after her seizure and being told that a high fever may trigger another seizure. I hope my girls are back to normal by Christmas. They are getting so anxious to open their presents! (Me too!)

We have a very busy couple of days coming up. Our usual routine every year. On Christmas Eve, I work half a day, then my boss takes us to lunch. Then it's to my Grandma's house to sing happy birthday and have cake and ice cream. Then we go home and get ready for dinner at my mom's. After dinner we head to my in-laws to open presents.

Christmas Day, we try and wake up early to open presents at our house. Then we go to my mom's and open presents there. Then we will head to DH's Aunty's house (about an hour away) for lunch. Then back to my Aunty's house (about 30 min. away from home) for dinner. Very very busy! Next year it WILL be at our house for lunch! We end up so tired by the time we get home! Oh, did I mention, in between all of the going out and opening presents, we still need to cook one main dish and two desserts.

Woohoo Camryn!! It sounds like she is really starting to move around :) Hey girl, you are getting really close to Camryn's B-Day party. I hope you have gotten most of the things done by now :) I leave on vacation this weekend for a week. I can't wait to see some pics when I return! Take care girl!

Woohoo Camryn!! It sounds like she is really starting to move around :) Hey girl, you are getting really close to Camryn's B-Day party. I hope you have gotten most of the things done by now :) I leave on vacation this weekend for a week. I can't wait to see some pics when I return! Take care girl!

We had our meeting with the occupational and physical therapists last night. The physical therapist basically said that Camryn is at about a 4-5 month old in gross motor skills. She showed us a few exercises to get her moving and balancing better. We will definitely be doing those several times a day. The physical therapist also let the occupational therapist know what other exercises to do to work with Camryn which they will show us at a later date. My MIL seemed to have some difficulty trying to do one of the exercises with Camryn. I hope she gets it, cause she has Camryn more than anyone else. Sometimes I wish I could stay home with her. The physical therapist will start seeing Camryn once a month to make sure she's progressing.

Now I just need to find time to study. So hard to do when I go home and need to help my oldest with her homework. Sometimes we stay up to 8:30 or later doing homework. By the time we're done, I just want to relax and go to sleep! Now I need to squeeze in time to study. Maybe weekends.

Well, back to work. Have a great day.

We had our meeting with the occupational and physical therapists last night. The physical therapist basically said that Camryn is at about a 4-5 month old in gross motor skills. She showed us a few exercises to get her moving and balancing better. We will definitely be doing those several times a day. The physical therapist also let the occupational therapist know what other exercises to do to work with Camryn which they will show us at a later date. My MIL seemed to have some difficulty trying to do one of the exercises with Camryn. I hope she gets it, cause she has Camryn more than anyone else. Sometimes I wish I could stay home with her. The physical therapist will start seeing Camryn once a month to make sure she's progressing.

Now I just need to find time to study. So hard to do when I go home and need to help my oldest with her homework. Sometimes we stay up to 8:30 or later doing homework. By the time we're done, I just want to relax and go to sleep! Now I need to squeeze in time to study. Maybe weekends.

Trust me momma, I have my days that I am not very strong. Anytime anything new comes my way I go through my sadness period, then I accept it , then I HAVE to get strong and do the best I can with the situtaion. You are being very strong too, you just don't see it because you are in the middle of it all.

We started working with Sean's eyes at around 9 months. One eye would focus but the other would wonder off. We tried patch therapy and drops therapy and neither worked for him. We did have to work alot with OT with depth perception. He would always over shoot or under shoot for things. He is much better now with that and his vision seems fine. He has not gotten checked in over a year, so it is time for a new apt.

I am glad I am here for you momma! It is tough having a little one with special needs so it is nice to bounce ideas, concerns etc. off of someone else who is going through the same thing :_ ((HUGS)) 2.5 weeks until our Neurologist apt. for the boys. I am anxiously awaiting this apt. to finally get some answers on what is going on with my 1 year old. See, I am not too strong with that one yet LOL.

Trust me momma, I have my days that I am not very strong. Anytime anything new comes my way I go through my sadness period, then I accept it , then I HAVE to get strong and do the best I can with the situtaion. You are being very strong too, you just don't see it because you are in the middle of it all.

We started working with Sean's eyes at around 9 months. One eye would focus but the other would wonder off. We tried patch therapy and drops therapy and neither worked for him. We did have to work alot with OT with depth perception. He would always over shoot or under shoot for things. He is much better now with that and his vision seems fine. He has not gotten checked in over a year, so it is time for a new apt.

I am glad I am here for you momma! It is tough having a little one with special needs so it is nice to bounce ideas, concerns etc. off of someone else who is going through the same thing :_ ((HUGS)) 2.5 weeks until our Neurologist apt. for the boys. I am anxiously awaiting this apt. to finally get some answers on what is going on with my 1 year old. See, I am not too strong with that one yet LOL.

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