Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

Bandages?

Has anyone found an effective way to bandage the groin area?
I have tried so many times and nothing stays. I get bandages from a medical supply company that medicaid pays for. Some are already adhesive applicative which is nice, but any time i try to bandage the groin area, the bandage just gets in the way, or doesn't stay.

Have you tried a vasoline-type one? Xeroform, I think is the brand name with an antibiotic on it. Or Acticote is what my son uses currently for the groin. If you make it wet first it sticks to your skin. There is also Micropor tape that you can tape to your skin that doesn't rip your skin when you take it off. You could use a primary dressing like Xeroform or Acticote, wrap it with Kerlix, and tape it in place.

This may sound nuts, but I found that plastic backed pads for breastfeeding works great. The kind I use is made by Lansinoh(sp?) and it has an adhesive strip on the back that can strick right to your underwear. I wear the boy shorts panties and it seems to help it stay in place nicely.

I just use Johnson and Johnson 3x3 Pads. I have help in that area as my husband is a &quot;Surgeon Wanna-Be&quot;, and has been a great doctor to me in the past 5 years. I use &quot;Sensitive Skin&quot; Tape. Which his &quot;hardly&quot; for sensitive skin.

You might feel uncomfortable trying this but.. Maxi pads and panty liners work great for bandages. If your skin is really irritated you can stick the adhesive to your clothes to give your skin a break. And they are a lot cheaper than bandages.

Normally I just use some of that drawing salve on the back of a big BandAid. Depending on the size of the boil, I often use the bigger, square type pads. They typically stick pretty well until it starts to drain. Then I just put another one on. As for actually bandaging it, though, I can't imagine how that would work. I sure do wish you luck in finding the perfect remedy!

My allergist gave me square plastic that sticks around the edges. It was about 6x6 in. I put 4by4 gauze over the area first.

You can also take an old t-shirt and cut it about 5 to 6 inches wide around the bottom and tying it over clean gauze pads around the thigh area. I would use this for going out and just to keep it from rubbing.

Please read my latest journal entry and find out how I cured my HS and view my before and after pics.

A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...

I know that not everyone is "on board" with marijuana. I'm sure many of you are against it. And that's fine. I respect your views, as I'd hope you respect mine. But for those who are not against it, I have a question. Am I the only one that has noticed a SIGNIFICANT difference in pain and flare ups? I've noticed that when I take a few days or so break from smoking, I'm in so much more sticky,...

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