BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:03:10 PM EDT 2003Jay, I know you and Mom will have a blast. This conference is shaping up to be absolutely the best ever. Lots of fun stuff for kids of every age (even really old ones like me!).

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:03:48 PM EDT 2003Well, if they are coming from the No. VA area....they should be inside -- raining AGAIN. I'm ready for the FL sun!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:06:14 PM EDT 2003The best way to describe these last few weeks is - a roller coaster. You just hang on for dear life and enjoy the ride. And scream at the top of your lungs!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:06:57 PM EDT 2003It will be a very interesting mix of people. I'd say about half the families participating have been with us other years, and about half the families are new. That will benefit everyone!

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:07:24 PM EDT 2003Hi everyone. We've been packing up the quilts to get them shipped to Orlando! They have been covering our ping pong table. Now, I guess we will be able to play ping pong again.

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:07:33 PM EDT 2003Hey Lauren. Got some didge volunteers? You wouldn't believe the number of emails I've received asking what on earth a didge is, and if they were volunteering, what were they getting into!

Julia/A2angelmommom to Ethan 5 dx @ 10mo&nbsp(64.12.96.46) Thu Jun 19 09:07:35 PM EDT 2003Hello friends...i made it, the kids are about to walk in from Bible School

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:07:43 PM EDT 2003Hi Lauren -- do you have all of the volunteer slots filled?

Julia/A2angelmommom to Ethan 5 dx @ 10mo&nbsp(64.12.96.46) Thu Jun 19 09:09:51 PM EDT 2003Ok i tell you every year i will be glad to iron them....just make sure there are plenty of margaritas

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:10:20 PM EDT 2003I'm really excited for all of you first-timers. I remember the first year we all got together in Orlando... I looked at everyone with their beautiful kids all having a great time, and I just sat down and cried. It's pretty incredible.

How many of you are coming early? I understand the Coronado is about sold out.

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:10:31 PM EDT 2003Laura, I guess YOU could make him a new quilt.

debstevianMom of Ian, 2, dx'd @ 10 1/2 months&nbsp(64.72.81.216) Thu Jun 19 09:10:35 PM EDT 2003Hi, Iansmommy, my son is Ian also and diagnosed at a young age too, 10 1/2 months. I hope we can meet...

Julia/A2angelmommom to Ethan 5 dx @ 10mo&nbsp(64.12.96.46) Thu Jun 19 09:11:05 PM EDT 2003We get there Sat nite but will be in a Roadway inn in kissamee

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:11:19 PM EDT 2003Nah, I'd have to solicit help. I didn't make the first one. I have friends in high places... with sewing machines... and they know how to use them!

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:11:41 PM EDT 2003The Yeager family is arriving on Saturday the 5th. We thought we could do the parks for a few days before and after the conference.

CherylMom of Haley, 10, dx'd at 9&nbsp(12.232.108.46) Thu Jun 19 09:11:42 PM EDT 2003Hi everyone. Hi Brenda! Freddie and I are looking forward to seeing you at the conference (and looking forward to the conference too!)

Julia/A2angelmommom to Ethan 5 dx @ 10mo&nbsp(64.12.96.46) Thu Jun 19 09:11:48 PM EDT 2003That first year was pretty neat...i amazes me the friends i made and still keep in touch with and see yearly at the conventions

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:11:49 PM EDT 2003Laura, we are arriving in FL on Friday (4th) but not going to Orlando until Monday (7th)

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 09:12:02 PM EDT 2003We would love to meet you. It has been a rough 21/2 years-would be nice to talk to someone in the same boat!

LaurenVolunteer coordinator&nbsp(12.86.9.231) Thu Jun 19 09:12:06 PM EDT 2003can you find me a friend in a high place with a sewing machine????

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:12:11 PM EDT 2003Well, Laura B. and I have teen daughters who can babysit the little ones for a couple of hours, I think, so you moms can chat uninterrupted. We have a very busy schedule, but we could work it out somehow.

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 09:13:03 PM EDT 2003We will be there on the 9th-wasn't sure how Ian would do. It is his first time on a plane-long trip from Pa

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:13:26 PM EDT 2003Lauren, Jeff's mom is on the 11th floor of her bldg and that's the top floor. We still have a few of her pre-made backs on which you can put photos or whatever.

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:13:37 PM EDT 2003We'll be getting in on Sunday the 6th. The conference keeps me hopping, but I hope to get at least some pool time with everyone! Or - if it's raining - I understand my hotel room is 'headquarters' for the registration packet stuffing!

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:13:55 PM EDT 2003This is the first trip for our 2 daughters as well. We are flying in from Ohio.

Davedad of Jake&nbsp(67.85.20.189) Thu Jun 19 09:14:01 PM EDT 2003I am just putting my registration forms in the envelope to mail out tomorrow and saw that childcare needed to be registered by the 15th. Is there really no chance in getting in now?

Ellen (FL)Zack 15, Cozmo&nbsp(64.12.96.46) Thu Jun 19 09:16:04 PM EDT 2003Thanks.
Did we have to sign up for sessions? I assumed that it was going to be like the past 3 summer CWD conferences - decide moments before each session starts

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:16:06 PM EDT 2003I hope it'll be all rained out by the time we get there. In 2000 for our first conference, it was so dry that there were fires all over the place. Anyone remember that? My kids wanted to know why it smelled like a BBQ in Orlando.

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:16:08 PM EDT 2003Laura B.--are a lot of kids signed up for the childcare this yr?

debstevianMom of Ian, 2, dx'd @ 10 1/2 months&nbsp(64.72.81.216) Thu Jun 19 09:16:22 PM EDT 2003iansmommy...we are coming from NY..Ian's first time also but he is so excited!!. I am actually going to Lancaster Pa this weekend (little family vacation) weather is not looking too good I hear. We love PA. Yes...we are staying at the Coronado.

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:17:10 PM EDT 2003No, you don't have to sign up for sessions. Just show up - like other years. However, it will be more crowded. The general sessions (the big ones) will seat 720, and we'll be in rounds vs. theater style. Which means you can have a cup of coffee on the table, writing stuff, etc. The other rooms are smaller and set with just chairs.

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:17:44 PM EDT 2003However, if you are putting a child with diabetes (or another health problem) in childcare, you DO need to complete the medical information form that says which sessions we'll find you in. Just in case.

Ellen (FL)Zack 15, Cozmo&nbsp(64.12.96.46) Thu Jun 19 09:17:45 PM EDT 2003Hi Ian. My son was 15 months old when he was diagnosed too. Wait until you see how BIG he is now at 15 years old !

LaurenVolunteer coordinator&nbsp(12.86.9.231) Thu Jun 19 09:20:26 PM EDT 2003my kids have always had a blast in childcare... lots of crafts and fun things to do... are the same people doing the childcare that did it last time?

Davedad of Jake&nbsp(67.85.20.189) Thu Jun 19 09:20:41 PM EDT 2003Where can I get info on the sessions for Friday? I have the thursday sessions but can't find Friday's

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:21:07 PM EDT 2003Half have diabetes. No, I didn't mail confirmations for childcare. Email me privately if you're not sure you're signed up.
Childcare is largely games (big and small), art, videos, plus a couple of really fun visits from Zippora Karz (ballerina from NYC Ballet) who will be doing movement to music with the kids. It's a lot of fun. Most kids cry when they have to live. Just to warn you!

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 09:22:24 PM EDT 2003if they have problems in child care can they leave early and try again next day

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:22:37 PM EDT 2003Lauren, about the margarita party Monday night -- is this for real or just a 'marketing' ploy to grab volunteers?

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:22:49 PM EDT 2003The kids do learn about diabetes in childcare, but it's on a different level. They learn by watching, asking questions, etc. I'll bet most of them have not been in the room while 45 other kids get tested and have snack! They talk about diabetes stuff when the topics come up vs having scheduled talks about it.

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:23:31 PM EDT 2003If the child has problems in childcare, yes, of course you can try again the next day. It isn't for everyone... but it is for most little people.

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:24:11 PM EDT 2003My 5 year old (non D) is sitting here with me and getting so excited about what I am reading her about the child care. She was really excited to know she gets to meet the "ballerina"

JayDiabetic 29 years&nbsp(151.199.239.89) Thu Jun 19 09:24:17 PM EDT 2003Sorry everyone. I have to go. A friend of the family is on the phone. She needs to talk to us for support. I'll fill you in.

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:25:00 PM EDT 2003Lauren - yes, same staff as two years ago, but different name. They are now called Kids Nite Out. Do you remember Loretta? She was in charge two years ago - she's running it again this year. Animas is staffing it with CDEs for diabetes care. This is their 3rd year doing this, and they are incredible.

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:25:05 PM EDT 2003Ok, just double checking -- didn't want to be the only one with a blender, bottle of tequila and margarita mix!

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:26:40 PM EDT 2003We go the Myrtle Beach every year with a group of friends and we all are hooked on Mudslides!!!

LorieMom of Ryan,6, dx'd at 3&nbsp(68.63.122.167) Thu Jun 19 09:26:58 PM EDT 2003Lauren, when will we get a schedule of things we have volunteered for? I know about registration on Thursday but I don't have the schedule for Friday. Thanks

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:27:38 PM EDT 2003The ballerinas helping Zippora on Weds aren't very little. They are young ladies, ages 7 (I think) to 13. A very good group. Zippora asked me to let everyone know that she is very available to talk with any child who would like to talk with her. Kids shouldn't be afraid to come up to her to talk. She is very kind.

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:28:44 PM EDT 2003I found a bunch of info about Zippora online and printed it for Paige and she is reading it as we speak. This has just made it even more exciting for her.

Ellen (FL)Zack 15, Cozmo&nbsp(64.12.96.46) Thu Jun 19 09:30:52 PM EDT 2003Hey on the didgeroo site it says termites dig out the wood...I can bring termites from south Florida!

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:30:54 PM EDT 2003Laura, I have Zippora's permission to share her email address so any aspiring dancers who want to write her ahead of the conference can do so. Please send an email to: zipkarz@hotmail.com

Davedad of Jake&nbsp(67.85.20.189) Thu Jun 19 09:31:22 PM EDT 2003I left to get schedule, Fridays aren't just for moms :)

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:32:03 PM EDT 2003Hey Ellen, we can bring ours from Oregon and they can visit. Although the didge this group will be working with is PVC pipe!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:33:37 PM EDT 2003Did everyone see that one of the exhibitors is bringing a rock climbing wall? It will be set up right in the exhibit hall in a 10x10 booth space.

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:34:37 PM EDT 2003Kari, actually I live in cloudy northeastern Ohio. That is why we seek out the sun every summer in South Carolina

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:34:53 PM EDT 2003Ellen, I had the pleasure of making a didge with Hamish and his band last year. It was SO much fun. Our kids are going to love this. And the sounds they make...just wait. As I said before, I never made it past making bathroom noises with mine. Plumberoo OH YEAH!

Ellen (FL)Zack 15, Cozmo&nbsp(64.12.96.46) Thu Jun 19 09:34:55 PM EDT 2003Oh that's awesome Laura. I don't know how you manage to make every year even better than the previous one! KUDOS TO YOU...and thank you for all you do to make this such a spectacular and warm and loving event.

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 09:35:09 PM EDT 2003Is it true we will need an extra suitcase for goodies from the conference?

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:35:21 PM EDT 2003If any of your teens are interested, I think some of the ones I know are heading over to Blizzard Beach or Typhoon Lagoon on Tuesday. Natalie Bellini (from Animas, but for the purposes of this conference she is Faculty) has volunteered to go with them.

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:36:06 PM EDT 2003Looks like there is a full line up in the exhibit hall of fun things to do.

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:36:13 PM EDT 2003Laura, I am amazed at all that you do setting all of this up. I was telling our new CDE that we met with yesterday about all of this ( the website included) She was very impressed and plans to attend some of the future conferences.

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 09:36:22 PM EDT 2003Can children younger than school age get involved in the sessions-like the one with Hammish

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:36:43 PM EDT 2003Yes, definitely bring an extra suitcase. Thanks for the kind words, Ellen. This is a very fun conference to pull together. It has a life of its own!

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:36:49 PM EDT 2003We Hitchcocks are planning on Blizzard Beach on Tues. Kathryn, non-D, will be 13 on 7/10 during the Conference so she selected BB as her bday party.

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:37:25 PM EDT 2003Nope - the kids have to be 7 to do the didge session. It's a matter of safety (hot wax) and space. Hamish will come visit with the younger kids, and I bet he'll bring his didge along.

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:38:00 PM EDT 2003My brainstorm for the extra suitcase is to fill one with bottles of water and snacks and then it will be empty for the return trip home!

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:38:18 PM EDT 2003Laura, I will try to call you tomorrow about getting a cake to share, too. Found a great bakery in Orlando via The Food Network on t.v. I gained 10 lbs. just watching the show.

Ellen (FL)Zack 15, Cozmo&nbsp(64.12.96.46) Thu Jun 19 09:38:36 PM EDT 2003Will there be water to drink all day during the sessions?

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:39:30 PM EDT 2003Also - in a more general sense - younger kids need to stay in the childcare area or with their folks in the adult sessions. The school-age sessions are for kids 7-11, and we have space pretty much just for that group (actually, we're filled to the gills right now). Also, from a supervision standpoint, we do not do blood glucose testing of kids in the school-age sessions. We DO do testing in childcare. Kids younger than 7 need to either be in childcare or with their folks.

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:39:52 PM EDT 2003So, who is it that is stopping by for the celebrity session?

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:40:38 PM EDT 2003There will be water in every session. There will be coffee and iced tea service all day Thurs and Fri in the exhibit hall (another new feature!). Also, this year, boxed lunches will be served Thurs and Fri. You can take the boxed lunches to the exhibit hall, to the pool, to the playground, out by the lake... wherever!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:41:06 PM EDT 2003The celebrity sessions are the Didge sessions. And there may be one more surprise. It's still under my hat.

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:42:30 PM EDT 2003Oh for Pete sake Julia, you are one person who could get away with wearing a bikini and REALLY look good. See if I sit next to you at the pool!

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:42:33 PM EDT 2003Laura, are the sandwiches for the boxed lunches made without mayo/mustard, etc?

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:42:40 PM EDT 2003Also... Will Cross is a new addition to the faculty. Does anyone remember him from this winter? He has type 1 diabetes, and he trekked from the coast of Antarctica to the South Pole, with his dad. He will be in sessions with our kids on stress management - one with the teens and one with the school-age. He'll also be meet-able at the Novo Nordisk booth.

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:43:21 PM EDT 2003I'm with you Julia only I wear a huge Tshirt!!!!! I always find though that I don't look so bad as I look around at others on the beach. It is quite amazing.

Julia/A2angelmommom to Ethan 5 dx @ 10mo&nbsp(64.12.96.46) Thu Jun 19 09:43:54 PM EDT 2003thanks Kari...but i just tried on suits last nite again and i would not walk out of the dressing room in them

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:44:09 PM EDT 2003Ellen, Zack is prime bait for Sam, Clare and the rest of the IDYA's. We need great teens like him to work with them!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:45:52 PM EDT 2003The boxed lunches - actually all the menus - are all available to see on the website. http://www.childrenwithdiabetes.com/activities/orlando2003/menus.htm

At this point, I cannot make changes in the food. The accompaniments are on the side for the box lunches. Chicken caesar salad is an option. If you need veggie for lunch, let me know by tomorrow. It will be a salad with cheese and garbanzo beans instead of chicken. I've already sent in numbers of things, but I can add a veggie or two (just for lunch).

debstevianMom of Ian, 2, dx'd @ 10 1/2 months&nbsp(64.72.81.216) Thu Jun 19 09:48:05 PM EDT 2003Are there any children around the age of 2-2 1/2??

KimMom of Alex, 4, dx'd at 18 months&nbsp(64.252.82.133) Thu Jun 19 09:48:14 PM EDT 2003Hi All! Just got here, I was checking out what a digeridoo was...wanted to know what I was volunteering to help with!

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:49:32 PM EDT 2003Kim, it is guarenteed to be a blast! Glad you will be joining in the fun.

CherylMom of Haley, 10, dx'd at 9&nbsp(12.232.108.46) Thu Jun 19 09:49:33 PM EDT 2003Wow! That's alot of kids. Are they split up further into smaller groups or just one big group during their sessions?

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 09:49:33 PM EDT 2003debstevian how will i know how to find you to meet up with you

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:49:48 PM EDT 2003There are a lot of children in ALL age ranges. Picture 500 children. Actually, more like 600-700 once all is said and done. Yes, there will be a lot of toddlers.

Julia/A2angelmommom to Ethan 5 dx @ 10mo&nbsp(64.12.96.46) Thu Jun 19 09:50:34 PM EDT 2003There is always a ton of food and it is great

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 09:50:52 PM EDT 2003debstevian...Ian is soexcited to meet another boy named Ian and who is special just like him

KimMom of Alex, 4, dx'd at 18 months&nbsp(64.252.82.133) Thu Jun 19 09:51:02 PM EDT 2003Hi there Kari!
Everything about these conferences are wonderful (except if you get sick or wind up with frozen insulin, right Brenda?)

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:51:21 PM EDT 2003Some of the kids sessions will be all together. Others, we'll break the kids into sub-groups by age. Others, we'll deliberately have smaller groups, but have older kids helping younger kids. Lauren is arranging for parent helpers in each session as well. Plus each kids session has at least one CDE as faculty.

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:53:03 PM EDT 2003Yes, Kim, that's right! Not really in full Conference mode yet. First, I have to survive Marissa attending camp next week, her first non-D camp. Have to find a secure box for all her supplies; needs to be double closed, I think, to keep racoons out of the food!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:53:04 PM EDT 2003I just pulled out the numbers... last count there were 40 kids under age 3.

debstevianMom of Ian, 2, dx'd @ 10 1/2 months&nbsp(64.72.81.216) Thu Jun 19 09:53:19 PM EDT 2003iansmommy...maybe we can meet up on Wednesday night at the hotel, maybe in the exhibit area. How can we coordinate something? Would you like to call me once you get settled and we can meet?

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 09:55:07 PM EDT 2003debstevian/iansmommy: the reg. packets always include name tags you wear around your neck. Will make it easier to find each other.

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 09:56:38 PM EDT 2003I can't wait to see the new quilts added to "The Quilt For Life" since our last showing. Anyone who doesn't have one for your child, you will after this conference. Bring kleenex!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 09:56:41 PM EDT 2003Dave - If you're still on, I got your fax, and you need to send the Medical Information sheet, too. Not just the childcare registration form. It's on the same webpage as childcare registration - it's called childcare information. Ok?

debstevianMom of Ian, 2, dx'd @ 10 1/2 months&nbsp(64.72.81.216) Thu Jun 19 09:58:00 PM EDT 2003iansmommy...my name is Debbie Sanford, my mom made the reservations her name is Carol Lovitch...just ask for our room number when you check in and give me a call.

LaurenVolunteer coordinator&nbsp(12.86.9.231) Thu Jun 19 09:59:37 PM EDT 2003We will be setting up the quilt at 12:45 on Wednesday. If anyone is interested....

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 09:59:38 PM EDT 2003I can't wait to see the quilts as well. The list inspired me to create one quickly for Paige and mail it off. I cried just making hers and that was after I cried looking at the others on the web site.

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 09:59:58 PM EDT 2003We are anxious to see Brooke's quilt square next to all the others!

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 10:00:21 PM EDT 2003debstevian....sounds good. Can't wait, we are all very excited. Hopefully everything will go okay, Ian is pretty sick right now. Hoping he gets over this in the next weeks.

LaurenVolunteer coordinator&nbsp(12.86.9.231) Thu Jun 19 10:00:27 PM EDT 2003The quilt is so moving... I get choked up each time I see it.

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 10:00:50 PM EDT 2003Lauren/Laura, any POC to reach if we have any free time to see if we could pitch in at the 'last minute' to help with something prior to conference kicking off?

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 10:01:28 PM EDT 2003Actually, Jeff and I were really amazed by one that came about 2 wks ago, not that it is any nicer than the others, but that it came all the way from American Samoa!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 10:01:33 PM EDT 2003A reminder for those folks who haven't yet registered, but who might read this transcript in the next week or so. I am only taking faxed and mailed registrations through July 1. After that, you'll need to register on site at Disney. And if you are still in the process of making a quilt square, bring it along and get it to Brenda by Weds noon. We can always add it on.

iansmommyMom of Ian, 31/2, dx'd at 15months&nbsp(12.90.25.30) Thu Jun 19 10:03:05 PM EDT 2003So it would be best to bring quilts at this point?

Kari RosenfeldMom to Teen-Clare, Dx 93&nbsp(67.250.105.33) Thu Jun 19 10:03:14 PM EDT 2003Brenda, you should have seen the faces of people at the ADA conference when they stopped by our booth to see the quilts Jeff brought. In a room filled with professional people, medical and science folks, our little kids and their quilts stole the show!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 10:03:34 PM EDT 2003Well, it's 10:00 so I need to officially end the chat. However, the room will stay open for awhile if you want to keep talking.

Yes, there will be plenty of kleenex! (Actually, Kari, put that on your to-do list for when we get there... check out the kleenex stash and make sure they are stocked up!)

Julia/A2angelmommom to Ethan 5 dx @ 10mo&nbsp(64.12.96.46) Thu Jun 19 10:03:47 PM EDT 2003Cheryl the collage is a collection of picture of all the children attending the confrence

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 10:04:03 PM EDT 2003Hmm, as I recall, if you go down a passageway between a bar and the food area of the hotel, you go straight, then down to the right. That's IF you are starting on the water side of the hotel.

Brenda H.Mom of Marissa, 15, dx/d 9/89&nbsp(216.68.227.14) Thu Jun 19 10:04:30 PM EDT 2003Yes, iansmommy, because we are shipping them soon and they are packed already.

Connie (VA)Mother of Brooke, almost 5, dx'd 8/02&nbsp(68.100.93.9) Thu Jun 19 10:05:37 PM EDT 2003After filling out the online survey -- all teary eyed, I know that Kleenex is a must for the conference!

LaurenVolunteer coordinator&nbsp(12.86.9.231) Thu Jun 19 10:05:55 PM EDT 2003can't wait to see you all in orlando... gotta get kids to bed. Last day of school tomorrow! Goodnight all!

BilletdeauxCWD Events&nbsp(68.40.217.40) Thu Jun 19 10:07:37 PM EDT 2003This is the last conference chat. Please feel free to email me with specific questions and I can get the responses out to the entire list.
Reminder: The convention center is all under one roof. Things are very close this year IN the convention center. However the rooms and the hotel itself are quite spread out. So, wear walking shoes. We will have a couple of small shuttles running around the lake on Thurs and Fri from 8-4, so if you need a quick ride back to your room or to the pool to check on the kids (playing hookie), that will help.

KrissMom of Paige age 9.5 dxd @ 3&nbsp(64.18.33.143) Thu Jun 19 10:09:29 PM EDT 2003Goodnight all. See you in sunny Florida. And Laura, thank you so much for all that you have done already and will continue to do in the weeks ahead. It does make a huge difference in so many lives.

SaiDad of Sai,. 4, dxd at 1&nbsp(24.165.152.159) Thu Jun 19 11:10:45 PM EDT 2003I am looking for a non-invasive monitors on the internet and I found one link, which I posted. Did you have a chance to look at?.

SaiDad of Sai,. 4, dxd at 1&nbsp(24.165.152.159) Thu Jun 19 11:21:47 PM EDT 2003Sonia: I had trouble managing during physical excersise. I give her 25 to 30 Carbs before the exersise. I disconnect the pump. After 2 hours, her reading will be 120 to 150. But I had to give her atleast 2 units of humolog to maintain her levels at 150. Could you explain this phenomena.

Last Updated: Friday June 20, 2003 09:31:36
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