Welcome!

I would like to extend a warm welcome to this blog. Please know that I offer advice, support, and experience based on my role as the parent of a micropreemie. This should in no way be construed as a substitution for the recommendations of your medical provider. Please make sure to check in with your child's doctor before implementing any changes. Thanks so much for being here!

Have a question or issue you would like to see addressed? Please feel free to email me at:parentingmiracles (at) gmail (dot) com

Thursday, August 28, 2008

I had planned to post C's birth story on Monday, but since FishMama is hosting a story swap today, it seemed like the right time to do it. And so, without further ado, here's how my baby girl's very early birth came to pass...

On December 22, 2005, I was at home with my ten-month old son. I felt a little tired and achy and I attributed that to pushing myself too hard the day before trying to get last minute Christmas tasks accomplished. Right around noon, I felt some liquid and a quick check revealed that I was bleeding. My husband was working two hours away, so he called one of his sisters to go with me to the doctor's office. My biggest fear was that they would put me on bed-rest... how was I to take care of my son if I was laid up in bed? It never occurred to me that I would hear this-

"You're in labor. Three centimeters dilated and your bag of waters is bulging. You need to get to IU Hospital. We can't handle a baby so small here."

I was shocked. I was also shocked when they gave my sister-in-law directions and told us we'd get there faster if she drove rather than wait for an ambulance. What?!?!?

I called my husband and he will tell you that I was amazingly calm. So calm that he thought I was joking for a second, but quickly realized that I would never joke about such a thing. His work was far closer to the hospital than I was, so he headed over there and got me pre-registered.

It was a Thursday evening when I arrived at the city hospital. At this point, I still really believed that they would give me something to stop my labor, maybe observe me for a day, and send me on home. I fully expected to be home for Christmas. Instead, they told me that I would not be leaving the hospital until I had the baby and they were hoping to get me to hang on until at least 28 weeks. The rest of the evening passed with a series of visits from OB's, high-risk OB's, neonatologists, and developmental pediatricians. They all seemed to arrive in pairs and they all shared scary statistics with us, e.g. "If your baby is born at 24 weeks, he'll have a less than 50% chance of survival. If he does survive the birth, there's only a 40% chance he'll make it through the next 48 hours. Of the babies who DO survive, 40% will have a severe disability (e.g. blind, profoundly retarded, and unable to walk), 40% will have a moderate disability (e.g. blind, deaf, or cerebral palsy), and 20% will be considered "normal" (correctable hearing and visions problems fall in this category, as do minor developmental delays)." With every week of pregnancy that passed, the statistics got better and better. At this point, I was 23 weeks 5 days pregnant. It was a terrifying lot of information to take in.

They started me on magnesium. This is sometimes successful in halting labor. It also gives you vicious hot flashes and some nausea. Small price to pay. They also gave me antibiotics. That night, I received the first in a series of two steroid shots that can accelerate lung development in the fetus. These shots are only effective if both are administered and they have to be given 24 hours apart. I would not get the chance to have the second.

Neither my husband nor I slept much that night. It was a scary, scary time. The next day was Friday and things seemed to look up. I felt no contractions and the monitor did not pick up on any. They removed the fetal monitor because my baby (we did not know gender at this point) never showed any signs of distress. Late that afternoon, my husband headed out (with my blessing) to go give our older child his bath and put him to bed. While he was gone, a nurse helped me shower and helped me into a REAL bed. Up 'til this point, I'd been in a birthing bed.

I was so content and comfortable for the first time in days. I was also exhausted. My eyes drifted close just as my husband returned. He tiptoed inside, hoping I'd actually get some rest. Shortly after, a nurse came in and asked me to change positions. As I did, she left the room.

I felt a huge gush. I told my hubby, "I think I'm bleeding. A lot."

He lifted the sheet and quite calmly said, "I'm just going to get the the nurse, hon."

The nurse came in and within seconds, the high-risk OB was there too. They turned on a blinding light and he checked to see if my labor had progressed.

I was completely dilated. I had never felt a contraction.

Things got really wild at this point. Once again, we were swamped with teams of doctors telling us all the risks and concerns. They pointed out that the type of C-section I would need (classic- cut both ways) had many risks and a difficult recovery period. But this was my baby's best shot. I was 23 weeks 6 days pregnant at that point. An infant so tiny would find a vaginal birth traumatic... also, she was footling breech because babies haven't "turned" that early in pregnancy. The odds of our baby doing well were not good. But I signed the consent form and they whisked me off to the O.R.

You know that your surgery is really an emergency when this happens... the operating table was broken and would not lower to where the surgeons could reach me. They called for a replacement and were told it would take three minutes to get there. The head OB said, "There's no time. We'll stand on stools."

The anesthesiologist had told me he would have to put me under and intubate me because they couldn't risk having me sit up for the spinal. They feared the baby would just slide out with me being fully dilated. Once he really looked at me though, he said, "You're awfully skinny for a pregnant lady, you might be able to curl up on your side and I'll do the spinal. Then you'd be awake." And that's exactly what we did. I was so fortunate to be conscious for the birth.

There were sixteen medical personnel in the room for my C-section. They almost forgot to get my husband. Fortunately, the anesthesiologist remembered and a nurse went and retrieved him just as they were starting to cut.

My baby was born at 12:32 AM on Christmas Eve. When she was born, she cried. That might not seem remarkable, but it almost never happens with 24-weekers. The head of neonatology at the hospital later recalled, "When she was born, she actually cried, and everyone in the delivery room was silent and awed... because that just doesn't ever happen with a tiny, tiny 24-week infant." Tough cookie, my little girl.

She weighed in at 1 lb 5 oz and measured 11 3/4" long. Her footprints are the same size as my thumbprints on her birth record. She spent 3 1/2 months in the NICU of an amazing children's hospital. She's beautiful, strong, determined, and precious.

And that's how my journey of parenting one of the tiniest of miracles began...

I have followed your story since we were both pg together on the babycenter April 2006 boards. I'm so glad to know I can follow your little trooper's progress on this blog. Keep the stories coming.Sarah

Wow, your story is so similar to mine. The bleeding, the rush to the hospital at (for me, 24 weeks), the magnesium, the c-section on a minute's notice. So different than we could plan -- or even imagine. It helps to hear others have been through this. I mourned the loss of my third trimester, a baby shower that never was, our lives turned upside down, etc. But that has faded as I enjoy my son more each day.

When I read this, I kept gasping and saying, "Oh my gosh!". You really do have a special little lady. I think what impressed me the most was the amount of doctors and nurses you said were present. I guess there really are good, caring doctor's out there.

Thank you for sharing your NICU journey with us. My first daughter Evvie was a 'big' preemie - her lowest weight was 3#12oz. Yet she did not cry at birth due to the high levels of magnesium in her little body. Our NICU stay was only 4 weeks. Evvie is almost 3 and as perfect as can be. :)My husband's aunt & uncle had a micro preemie also - Katy (now 6). She had to stay in the NICU for 5+ months and came home with all the equipment. Both girls are doing wonderfully now, and love to learn about Jesus.

Thanks for sharing your story. My daughter Airlie Fae was born at 27 weeks gestation weighing 1lb 14ozs on Jan 6th 2006 due to Pre Eclampsia and HELLP Syndrome. I think its so important to write your story. I have written mine and it was covered by a glossy magazine here in Austraila. You can check out my site under My Premmie and Premmie Media to read the story and see the movie of my daughters first 12 months. take care I look forward to reading more of your blog. Fiona

Wow. I've never seen your blog before. I am in tears reading this birth story. Thank you so much for sharing this. I was lucky and my labor at 27 weeks held out and I made it to 36 weeks. And my little girl didn't even cry at birth. A true miracle. I'm so thankful for your daughter's health and ability to pull through it all.

That was so touching! I love hearing happy preemie stories. Micropreemies are amazing. My son was born at 33 weeks, a whopping 2.086 kilos (about 4.5 pounds). HUGE, I know. People kept asking if we aren't scared to care for such a small baby, but he's our first, so we had nothing to compare to except other preemies. He was just normal, and the 7-pounders looked monstrous (there were a few in the NICU). My husband called them "tanks" but they were just regular sized babies :)

I am visiting from Fishmama's blog. Wow, what a miracle from the Lord! Your story brings back so many memories for me...the magnesium, the bleeding, the droves of medical staff, the tiny cry. My husband and I lost our second born son who was 30 weeks, but only weighed 1 lb. 13 oz. (very rare). He lived for 10 days. Even though people look at us with sympathy over my very poor ob history (we've actually lost 4 total), I look at my five living children, and am overwhelmed at our "happy ending!" God's love has never been so real to us as during those difficult days. I am honored to have something in common with you. I am so thankful that your daughter has done so well! "Statistics" are nothing; God is sovereign over these little ones!

I am sobbing. Thank you for sharing. I have been thinking a lot about my own birth story lately -- it seems so long ago and far away (10 months.) Your story helped me reconnect with the day that was the scariest and most horrible yet the best and most beautiful of my life.

I just found your blog through Twitter. I am crying reading your birth story. It brings me back to the scariest night of my life when my daughter was born a micropreemie, at 26 weeks. Thank you for being an advocate for the tiniest of miracles :)

Thank you so much for sharing your story. I just had my 24 week lovebug on Wednesday 10/20/2010. He's 1 lb 11oz and measured extacly 12 inches long. He's stolen my heart. And I can't imagine anything other than his beautiful face. He's being cared for at a very good NICU near our home, but its heart wrenching not to be able to be by is side every minute. I had a similar delivery, C-section. And the Doctors said that Braylon (my son) gave them the Peace sign when he was delivered. (smiles) Anyway. I know in my heart he is strong and will servive. at 11:26pm tonight he will be 4 days old. I pray for him all day. It is reassuring to know that someone else has a miracle baby like I do. And knows the emotions that I am going through. Thank you for sharing your story.

Wow Amazing.I am so happy to know that all ended well. I just can't imagine how hard and scary it was for you to go through this expeirance.I am glad that your baby is doing well and how blessed she is to have a parent like you. I gave birth a 10lbs 7 0z six months ago and 9 lbs 6oz 21 months ago I would have been scared to handle a tiny baby and afraid that I wouldn't know how to handle her without hurting her. Amazing. Have a blessed life and my your story encourage all the mothers out there who faces same situation.

Wow! That brought back memories! I almost gave birth to our triplets at 24 weeks, but lasted until 28 weeks when my little girl was just too impatient to stay any longer. Thank you for sharing your story. I wish SOMEONE would tell you these stories, instead of all the grim statistics!

My story is really nothing like yours because even though our first daughter was early and was in the NICU she was only 6 weeks early and looked almost full term in size, until she left the NICU I was always in denial. She was not just oz's or a few lbs it never really seemed like she should be there. (she did have real reason to be there though and PRAISE God she is now 14 and very healthy!)

BUT I just had to comment because I do know the value of a baby's first cry. My oldest daughter didn't cry. not ever. well not until she was at least 2 days old. That was the first time I heard her cry. 5 years later my son was born healthy and full term and he didn't come out crying either for an agonizing minute that seemed like hours my husband and I waited and we had both started crying with the instant thoughts of No this cant be happening again!! and one year 8 days after that when our third was born. she came out sreaming. lol actually the ob said he thinks she screamed from the inside, we laughed so hard and cried a whole new set of tears. #4 cried too as soon as he was born and now we are on #5 and hearing this baby's first cries will be the sweetest sound ever heard.

sorry to post this anonymous but we are ready to reveal we are preg w/#5 and I love your blog so much I'm going to suggest it to a few ppl I know that will love it too

I am actually surprised a doctor (even 5 years ago) would mention the word "retarded".(My son has been involved with physical, occupational, and speech therapy since he was born prematurely and all of his specialists will tell anyone and everyone they hear using that word that it is unkind, distasteful, ignorant, a big "NO-NO", etc. (Our MRDD has even been re-named to exclude the word!) It is a hurtful word to families like mine. :(

I just found ur blog and it is wondeful! I had a scary time with my twins, I was also put in the hosp at 24 wks. It seemed lil bro was trying to kick his sis out- to the point her head was at the opening.How could a mama not know/feel this?? I was so scared but thankfully with the mag and other drugs I stayed at hosp til 37 wks. She was still only 2 pounds but after a long stay 4 both- HEALTHY! Thnk u for ur story ..Tiffanysway976@msn.com

Thanks for sharing I just found your blog and love it already. My twins my 4th and 5th children were preemie but weighed in at 4.5 and 4.2 lbs. I had previously had 7 and 8 lbers. The two of them seemed so small I could not imagine tinier. I was able to take them home in 4 days and they are 6 years old now. I had a 5 lber for #6 and then #7 ( 4 months old now) was a whopping 6 lbs 13 oz!!! Thanks so much for sharing Michelle frugalredneck.blogspot.com

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