An, Sofiya
Chan, Chee Kai
and
Kaukenova, Botagoz
2018.
Families in Transition: Parental Perspectives of Support and Services for Children with Autism in Kazakhstan.
International Journal of Disability, Development and Education,
p.
1.

Recent reports estimate the prevalence of autism-spectrum conditions in
the UK to be 1%.

Aims

To use different methods to estimate the prevalence of autism-spectrum
conditions, including previously undiagnosed cases, in
Cambridgeshire.

Method

We carried out a survey of autism-spectrum conditions using the Special
Educational Needs (SEN) register. A diagnosis survey was distributed to
participating schools to be handed out to parents of all children aged
5–9 years. The mainstream primary school population was screened for
unknown cases.

Results

The prevalence estimates generated from the SEN register and diagnosis
survey were 94 per 10 000 and 99 per 10 000 respectively. A total of 11
children received a research diagnosis of an autism-spectrum condition
following screening and assessment. The ratio of known:unknown cases is
about 3:2 (following statistical weighting procedures). Taken together,
we estimate the prevalence to be 157 per 10 000, including previously
undiagnosed cases.

Conclusions

This study has implications for planning diagnostic, social and health
services.

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This study was funded by the Shirley Foundation. S.B-C., F.J.M. and J.W.
were funded by the Medical Research Council during the period of this
work. P.B. was supported by the UK NIHR Biomedical Research Centre for
Mental Health at the Institute of Psychiatry, King's College London, and
the South London and Maudsley NHS Foundation Trust.

Declaration of interest

F.J.S acted as an expert witness for the diagnosis of autism-spectrum
conditions and for the measles, mumps and rubella vaccine litigation, but
not for children in the population covered by this study.

Footnotes

∗

These authors contributed equally to the work.

This study was funded by the Shirley Foundation. S.B-C., F.J.M. and J.W.
were funded by the Medical Research Council during the period of this
work. P.B. was supported by the UK NIHR Biomedical Research Centre for
Mental Health at the Institute of Psychiatry, King's College London, and
the South London and Maudsley NHS Foundation Trust.

Declaration of interest

F.J.S acted as an expert witness for the diagnosis of autism-spectrum
conditions and for the measles, mumps and rubella vaccine litigation, but
not for children in the population covered by this study.

10Baird, G, Simonoff, E, Pickles, A, Chandler, S, Loucas, T, Meldrum, D, et al. Prevalence of disorders of the autism
spectrum in a population cohort of children in South Thames: the Special
Needs and Autism Project (SNAP). Lancet2006; 368: 210–5.

An, Sofiya
Chan, Chee Kai
and
Kaukenova, Botagoz
2018.
Families in Transition: Parental Perspectives of Support and Services for Children with Autism in Kazakhstan.
International Journal of Disability, Development and Education,
p.
1.

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