I decided to write about my passion for gardening past, present and future.
I have been ill suffering with Lyme Disease since May 2003 but at last after long term antibiotic treatment getting my life back and can again enjoy my garden.

Tuesday, 21 June 2016

EARLY JUNE IN THE GARDEN ROSES CLEMATIS AND VEGETABLES

Cornus Kousa Chinensis gives a wonderful display and because these are bracts they last so much longer than flowers.

Rosa Officinalis left foreground, Rambling Rector on the fence left bottom.

Left Francine Austin, Cornelia, Cecile Brunner, Cornelia and Francine Austin. The first three are grown from cuttings and strike very easily. The pink in the left foreground is Cottage rose which I have also managed to take cuttings from.

Looking across the garden with the woods in the background.

Looking diagonally up the garden with Crocus rose left foreground Sweet Juliet above that which grows so sturdily we use the tripods to support it. Bottom right is a sneak peak of Falstaff. With Parsnips, carrots and broad beans.

Another glimpse at a slightly different angle with Francis E Lester Rambler in the left background.

Rambling Rector with Clematis Pink Fantasy.

Goldfinch rose in the hedge above Marie Boisselot left and Josephine clematis.

Veilchenblau rambler with two flowers on my Carpenteria California and mock orange to the right of that.

ps I just read your side panel about Lyme Disease. Very interesting and I'm glad to hear you have improved. I had similar symptoms back in 2003/4 and finally got diagnosed with Guillame Barre Syndrome. You might want to add that to your list! I have always been allergic to mosquito bites and believe that the syndrome I experienced was as a result of one of those bites, on my leg. In the last two years my allergy seems to have disappeared! I cannot explain why. It is a mystery.

LYME LIFE written 2009

I started suffering with arthritis in mainly my large joints especially my knees 6 years ago. The symptoms varied and I remember saying that every joint was affected except my elbows to one doctor. I was told it would be hormonal and to take the usual supplements cod liver oil or glucosamine ( I would certainly recommend buying shares in the companies producing these supplements) They had no noticeable affect.

All my symptoms deteriorated significantly over a few weeks, 4 years ago. Hips shoulders and knees being the worst and I started with muscle weakness in upper arms and upper legs. I had difficulty standing and walking across a room. I was unable to walk upstairs and my husband was making plans to convert to a downstairs bedroom. I had seen 5 doctors and 3 Rheumatologists and put on steroids for Poly Myalgia Rheumatica diagnosis. I had been diagnosed with Fibromyalgia and ME/CFS.

I have X rays and scans showing signs of osteoarthritis and Rheumatoid arthritis. I have been retired early from the Civil Service having lost my job not to mention my earning potential.

My illness seemed to progress through my body not affecting the same joints left to right at the same time. I had bursitis in left hip, right hip, left elbow. I had synovial thickening in both wrists. At that time I could not lift and hold a magazine so lifting a kettle I could only do if a third full and with two hands. Each joint in my hands fingers feet and toes were affected. I had swallowing difficulties and many other symptoms. None of this describes the endless and awful pain whenever I moved or the tiredness but inability to get quality sleep.

Two years ago my GP gave me Amoxicilin for a sinus/throat/chest infection. All my arthritis symptoms improved. The course ended the symptoms deteriorated I started a second course the symptoms improved. The improvement was more significant than when I had started taking steroids. This led my GP to suspect Lyme Disease. I laughed because we do not travel abroad but she said they had had other cases in the surgery in the early stages of tick bite and Erythma Migrans rash. She said, but you have not had a bite. I said oh yes I have I had two on my ankles with rashes, March 05 this was confirmed on her computer at the time I had seen a locum doctor. My worst symptoms were waking up feeling rigid and having to painfully flex every joint in my body before struggling to get up. The only other time I had experienced this was in May 2003 during a flu like illness like no other I had ever experienced. At that time I had a bite and similar rash on my right foot which lasted like the other rashes about four weeks. I had also consulted the surgery and it was dismissed as a virus. I walked our dog daily in the woods adjacent to our house where the deer roam, prime tick area.

Thus started my very lengthy search about Lyme Disease leading me through http://www.lymediseaseaction.org.uk/ to a doctor who specialises in this illness. He confirmed my GP's suspicions. I never had a positive blood test but then they are antigen tests and there is much research that shows they are unreliable. In my case the year of steroids and many weeks antibiotics could have affected the results. So with a clinical diagnosis and following ILADS International Lyme and Associated Disease Society guidelines I continued on antibiotics for two years. Both my doctors continued to treat me despite the Health Protection Agency advising against long term antibiotics. I am now nearly 100% recovered I have no pain or muscle weakness. I can walk upstairs something I could not do for three and a half years. I can garden do house work and live a normal life. I still need to pace myself and with only a few months to 60 will not be looking to return to work.

Life is such a joy.

Sadly there is much controversy about Lyme Disease and doctors in UK are taught that it is so rare. Well where I live in Guildford I have been in contact with a dozen other people with it so perhaps not so rare as HPA would like us to believe. I am in touch with nearly 2000 other patients through a chat line Eurolyme most had been misdiagnosed with several other illnesses.

Look at UK charity http://www.lymediseaseaction.org.uk/ if you want to read more about this illness. There are many MP's taking an interest in the problems surrounding diagnosis and treatment see above charity links into a recent meeting at the House of Commons.

Thank goodness there are some thinking doctors around who have courageously treated me against opposition and I have made such a miraculous recovery albeit rather a lengthy one.

One day there will be many more people who are helped with their chronic illnesses when IDSA starts taking note of what our courageous LLMD’s are doing following ILADS Guidelines.