WHAT I LEARNED FROM DANIEL : THE BLOG ~~ Our loving, brilliant, and remarkable,twelve and a half year old son died suddenly, and without clear cause, the day after Thanksgiving, 2008. This blog is a window into how my husband, our children, and I learn what happened to him, and how we survive his passing from Earth. It is also a chronicle of the blessings that envelope us now. How we survive is documented both here in snapshot, and in our book, "What I Learned from Daniel".

Wednesday, October 26, 2011

A Story of Survival

I have spent a lot of time on this blog talking about the many times someone young has died of cardiac arrest following an undiagnosed issue. From reading my entries on this blog, one might wonder if physicians EVER diagnose cardiac issues which could cause arrhythmia, in advance of a sudden death. Of course, they do.
Jody McBrayer is a really accomplished singer who was a member of the Christian Contemporary Musical Group, "Avalon". He is known for his distinctive and excellent praiseful voice. He has also worked with some other singers. After performing and enjoying great public and critical acclaim with the group Avalon, Jody was diagnosed with hypertrophic cardiomyopathy,(which can be genetic, but can also occur following an infection which could be viral) and it became necessary for him to leave "Avalon" and their fairly rigorous touring schedule. This was unfortunate for all of us, and certainly, it must have been a big shock, and quite an adjustment for Jody and for his family as well. I can't tell you what symptoms led Jody to his doctor and to the diagnosis of hypertrophic cardiomyopathy, but I can tell you what the symptoms might be for many who have been diagnosed with it. NEW shortness of breath in a person who did not experience this before, especially during exercise or exertion is an important symptom. Chest pain during exertion may also be a sign. Fainting during exercise or exertion may also be a sign of Hypertrophic Cardiomyopathy. New fatigue, or being dizzy can also be a sign of this. Lastly, heart palpitations or the sensation of one's heart beating, sometimes rapidly, can also be a sign. Certainly, many of these signs can be simple anemia, or new onset asthma, or other maladies, so it's essential that if you experience them, especially following a cold or flu, that you see your doctor for proper diagnosis and proper treatment. There ARE proper and relatively effective management strategies. There is also a wide range of how debilitating this condition can be for those who suffer from it. I can honestly say that Daniel did not report these symptoms, although in retrospect, I remember his being a little tired after playing soccer on Thanksgiving, just about sixteen hours before our son's sudden unexpected death. Daniel did not have hypertrophic cardiomyopathy on autopsy or when his cardiac cells were examined for genetic indications of hypertrophic cardiomyopathy indicators.
Although not a lot is written about Jody, he remains alive, is married to Stephanie Harrison and he has a daughter named Sarah Clayton McBrayer who was born in 2005. If you get a chance, try to listen to his solo CD, "This is Who I Am". It is possible to buy this album on Amazon, Ebay, Half.com and other sources. Jody is still a solo artist and does occasionally do concerts. I am glad his issue was diagnosed and that he is able to remain with us, and his family, here on Earth. I look forward to his stabilizing sufficiently to perhaps release more of his own music. Jody is a graduate of Liberty University here in Virginia, and makes his home with his wife and family, in a small town which shall remain nameless, within 20-30 miles of Nashville, Tennessee. Hope you're feeling fine and doing well Jody and Family. You are certainly missed by many people who follow the Contemporary Christian Music Scene. Your music makes a difference to many people.....every day.

Daniel heard this music often in our home.

Jody with his wife Sarah, taken recently

Update: November, 2012 Someone wrote me and asked how Jody is doing. Judging from his active use of Twitter and his frequent Tweets, he seems just fine. You can catch up with him and wish him well there.

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In Daniel's Memory: Aid to his dogs and rescue horses, for their continued care. Thank you !

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My most significant life's work has not been how I have made a living, but has been raising our four biological children, and now, our adopted son, who came to us a year after our youngest son Daniel's passing. To my husband and I, our children, are the most important element in our lives and everything we do, is with them in mind. God is first and our family is central afterward, and everything else we do must adhere to and adapt around God and family.
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Most of the musical or video performances included within this blog and a few of the photographs are included under fair use laws. In these circumstances, copyrights are held by the respective artists, composers, and producers of these works. Other works are copywritten by me. ALL RIGHTS RESERVED.
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