This week is based on agitational training. It’s an in-your-face style of interaction between the session leader and the participants that helps break down barriers and the lies we tell ourselves to avoid doing difficult things. I didn’t think I’d ever participated in it before, but it turns out we agitate ourselves and others in our lives every time we won’t settle for the easy answer or the surface explanation.

For us, our formal experience of agitation started right off with introductions. We didn’t get challenged on our names, preferred gender pronouns, or which organizations we’re here with, but everything else was fair game for Don, that evening’s facilitator. “Why?” was the most common question, of course, but he was pretty brutal with his assessment of some people’s answers. “Sounds like typical liberal white guilt to me,” he told one woman who was waffly on why she does anti-poverty work. “Why do you do this work if you don’t know what you get out of it? You’re just wasting everyone’s time,” he told another attendee.

If it sounds harsh, it was. Don relentlessly went after a few people, taking five minutes or more to challenge them, their motivations, and their commitment to the kind of work we’re all here to do this week. It seemed even more arbitrary because his pursuit of a few people early on left less time to go after people toward the end who, it seemed to me, had even shakier answers than those initial targets.

The way I see it, his job was like someone saddle-breaking a horse. This week is designed to be uncomfortable, and he needed to set that tone. Agitational training is designed to keep us in tension, and to propel us forward with greater power. It’s never easy to soften people up for that kind of experience, but Don definitely had a boxer’s knack for bodywork.

But today, I was faced with a view of my activism that I’d never, ever envisioned. A beloved friend suggested that I might be on the path toward the kind of activism that harms and terrorizes other people. And I found myself replaying all the marches, rallies, phone calls, planning meetings, training sessions, and conversations I’ve had. I searched them from the outside looking in, scanning for visions of myself as frightening, threatening, angry, or intimidating. And, of course, my vivid visual imagination got straight to work manufacturing reflections of past scenes or shadows of future selves in which I’m furious and self-righteous, intolerant of other viewpoints, but blind to the faults in my own.

But those pictures aren’t real, and the rest of my memories yield images I can’t associate with terror. I speak clearly and fearlessly, yet with respect, to anyone who’ll listen. I work hard, but I goof off too and distract my friends for a few laughs in brief downtimes. I sing, I clap, I chant, I dance. I’ve cried with both joy and grief in the halls of power and in the streets.

I don’t know how these things are scary.

I do have the clarity to see that parts of my activism might provoke a negative response in some people. I may appear to have a rigid sense of what’s right and little tolerance for other positions. My voice can be strident when I try to make it heard over those who try to drown it out. I’m not a small person, and when I raise a fist of power or link arms in solidarity with others, I probably look unmovable. I talk a lot about the actions I’m taking, because they take up a big part of my life. I retweet too much.

It IS radical, what I do. Maybe I should get used to that statement: I am a radical. I believe in radical things, like the worth and dignity of every single person on this planet, and the power of a single person’s action joined with others. I do radical things, like give my time and energy and voice to causes that do not directly benefit me at all, just because they seem worthwhile and I recognize the power that comes with my privilege. I try to offer radical acceptance to every person I meet, by acknowledging that every life is a journey, and we’re not all at the same place on the path at the same time–judging or criticizing another person for being where they are on their path accomplishes nothing.

The internal conflicts I weather as I work through the evolution of my beliefs and the consequences of my actions aren’t visible to most people, so I’m sure I seem like another cardboard cut-out liberal rabble-rouser. I don’t talk with everyone about why some causes get my attention and others don’t. Part of that is embarrassment at the inexplicable, emotional reasons for some of those decisions. I have internal boundaries among the issues and tactics of activism that don’t always come from a sensible place.

But I hope my primary motivations are clear as day: I want everyone to feel the same love and enjoy the same rights I do. I love learning and free will and self-determination, and I believe everyone deserves equal access to them. Because that’s what moves me, I’m categorically opposed to tactics designed to frighten or deprive anyone of something that’s rightfully theirs.

And here’s where I’ll make the only qualification in this whole screed: disproportionate political or financial power is not a right. Those are things you earn, and if you use them to take away the rights and freedoms of others, then you have to be ready for the same people who gave them to demand them back. If you’re the one in power, the idea of losing that position might be frightening. It shouldn’t be, because power over others isn’t a right, but nobody likes to lose control. I can empathize; I’m a control freak too.

But one of the founding principles of democracy and human rights is the power of a group of people to rise up peacefully, speak their piece, and create change in society. Sometimes, the language of this right is misappropriated by people who want to use that power to take away others’ rights (often, that exact same right they’re exercising). But the truly great moments in history largely correlate to times when individuals have stood up for their rights in the face of overwhelming disparity in power and force.

It takes guts and advice and practice and support to do that and not falter. It takes the sight of other people to the left and right of you, whether it’s in a parade or a phone center cubicle or a line of jail cells. That’s who I want to be for others who are fighting for a better world. That’s what I want to be trained to do. And if my faith and conviction in the possibility of change toward greater freedom makes someone feel afraid of me or bad about themselves, all I can do is say that I love them and where they are in their journey. I’m just trying to be my whole, powerful self and make room for others to do the same.

Through it all, I’ve fielded a number of questions about how I can stand to invest so much of my heart and effort into issues so much bigger than myself, many of which don’t even touch me in my place of acknowledged privilege. Personally, I’ve never felt like I had much of a choice–I couldn’t not care or act on that feeling. But here’s a brief primer in how to find that commitment in yourself.

Step #1: Figure out what you believe in. Everyone has core values, and those are the only things that can motivate someone to stand up and fight the good fight. If all you can come up with are things like “I believe Han Solo shot first,” or “I believe in cake,” or “I believe that Washington is evil,” you’re not digging deeply enough–you’ve got to strike bedrock for this to work.

If you believe in the magical, transformative power of books, put in some time to improve library access or literacy programs. If your faith is important to you, figure out ways to act on the belief that all God’s children are worthy of love, or that this planet was given to us as a sacred trust and should be preserved. If your religion is democracy, work to bring sunlight and integrity back to the broken processes that limit our rights.

My bedrock truth is that every single person has inherent worth and dignity, and I act on this in a multitude of ways. I work for racial and LGBT justice. I strive for more accepting and safe schools for our kids. I speak out for freedom of the press and against the death penalty and mass incarceration. I march for each woman’s right to choose. I stand up for rights and respect for disability rights and neurodiversity. So many issues, one underlying principle.

Step #2: Show up. I’m not being trite or overly simplistic. Inertia is the greatest enemy to getting active on the issues that move you, and it’s why you need that deeply motivating value to clear away obstacles. Don’t know how to get involved? There’s this fantastic thing called the Google Machine. Use it. Scheduling conflicts? I don’t know an organization anywhere that won’t take whatever time you can spare, whenever you can spare it. Afraid of being challenged? Good. New experiences do that. But when you act in spite of that fear, you are most open to the experiences that will expand your views, your world, your circle of friends, and your hope for the future.

Two important things about showing up, though. First, show up as an apprentice. Too many groups swoop in as “suburban saviors,” with big ideas about how to fix people’s problems in a weekend. These solutions are the likeliest to stick, and they come from a place of privilege and self-gratification, not true altruism. Don’t come with an agenda–show up and ask how you can help. Second, keep showing up. Again and again, on the issues that matter to the community you’re joining. Let them know that you’re an ally who can be counted upon.

Step #3: Profit. Okay, I’m mostly kidding about this, but stick with me. You’ll never make big money doing good works, but that’s not why anyone gets into it. The dividends are much more varied and durable than money, though. When you keep showing up, you learn new skills, many of which spill over into the rest of your life and make you a better worker, partner, parent, and friend. The base of people you know explodes. If networking is king in the new economy, activism is like LinkedIn that actually helps people. Also, you’re going to have a ridiculous amount of fun. If you’re not having fun at least part of the time, then it’s not activism that’s failing you–it’s that you haven’t found the right group of people to do this work with, so keep looking!

Another important note: Profit happens, yes, but investing yourself in issues and people comes with ups and downs. The only way to keep the fire lit under your chair is self-care. Set boundaries about how much time and energy you can afford to give, so you don’t flame out in a few months–AND THEN KEEP THEM. Organizers are going to test those boundaries, and defending them is excellent practice for doing so in other parts of your life. And when you do feel like you’re burning out, don’t turn inward and shut down. Reach out to other activists who’ve been doing it longer than you. Ask how they stay fresh. Trust me, it works.

So that’s it. It’s not superhuman, it’s not rocket science. Pick something that matters to you, show up ready to work, and keep coming back. Every single person is an activist waiting for an issue, and we never know when we’ll break through and make history.

I felt it coming on yesterday: a strange, slightly alien feeling so unfamiliar, I couldn’t remember the last time I’d felt it.

I felt beautiful in my skin.

The sensation was so unusual that I found myself wanting to move around more, just to feel the shapes and textures that suddenly fit me. If you’ve ever rubbed your face on the silky strip of a blanket, or rolled around on really high-quality sheets, you know the feeling. And it wasn’t that I was wearing a good bra and new shoes that suit my funny narrow feet. And I wasn’t not in pain–the weather was changing, and we had a hell of a storm last night, both of which tend to bring out the odd twinges and aches.

No, I just felt beautiful in precisely this body. I still do today. I’m chalking it up to Midsummer magic. Today’s the solstice, and this is a holiday for many pagans that rejoices in the full embrace of the physical world and all its joys: strong, growing things; bright sun and warm winds; lust and passion and pleasure. I don’t know if this feeling will last after the power of the holiday has past, but I want to wallow in it now and share some uncommon thoughts.

I’m fatter now than I ever have been, though my 11-year-old son says it’s not fat, it’s Flubber, which is good. I’m 38 and I’m the mother of two. My unpredictable pain condition keeps me from exercising as much or as rigorously as I’d like to. I should stop drinking soda.

But I am a soft, voluptuous, powerful goddess. I am strong and graceful, and that strength doesn’t appear with ropey, flexing showiness; it’s hidden by smooth, rounded skin. I brace and balance, swing and glide, all without changing my outward shape. My body moves with me, not against me.

And sexy? Like you wouldn’t believe. Every curve nature ever intended graces my body: breast, hip, waist, thigh. I am made for comfort and love. I cushion soft bones. I envelop. I engulf. I protect like wings. I am full up.

I know, in the days to come, I’ll struggle again with feeling like the world wasn’t made to fit me. I’ll read the tightness and discomfort as a judgment on my size and beauty. Clothes and chairs, straps and seams will mark my skin, dent my flesh. But if I can hang onto just a bit of this Midsummer magic, I can remember that it’s not me who doesn’t fit the world; it’s what people have built onto the world that doesn’t fit beautiful, gracious, giving, comfortable me.

No more phonebanks, no more trainings. I’m home most nights of the week now. My feet have stopped aching from the Capitol’s marble floors. I’ve mostly caught up on sleep.

This is what victory looks like.

I attended my first training session to fight the hurtful anti-marriage amendment proposed for the Minnesota state constitution a full year before it appeared on the ballot in November 2012. Early the following spring, I attended my first phonebank and began my role in the massive conversation that reworked this state’s understanding of love, marriage, and commitment. I stepped into successively greater volunteer leadership roles as the next nine months played out.

And then we won. Minnesota became the first state to defeat an amendment banning same-sex marriage after 30 previous states had passed them. Jubilation isn’t too strong a word. Strangers in stores asked if they could hug me when they saw the campaign stickers on my coat. “I’m just so proud of my state,” they said, and I agreed.

A lot of people left everything on the field in the effort to send that amendment down to defeat. So when the campaign announced early in the new year that it would ride the momentum to take a shot at winning marriage equality this year, the crowd of people I worked with changed. Many beloved friends stayed to change a No to a Yes, but there was a shift, and I fumbled a bit to find my place in the new order.

Burnout wasn’t an unexpected guest after 15 months on the case, but I was still disappointed in myself to have lost the rhythm of self-renewal. I questioned the assumptions I’d built up in the previous campaign, that I was made for this work and the work itself gave me back more than I put in. But I’d grown enough as a person to know that this was a natural cycle, and that it called for reaching out for support, not withdrawing into myself.

And then, like the birth of every good and wonderful thing, came the Big Push. It required no exaggeration to convey the urgency of every single phone call, every email, every lobby visit. Thousands of us in orange and blue crowded the capitol on the day of the House vote. I worried that I would feel useless as a tiny cog with no sense of the great machine, so instead of simply accepting that, I asked for something specific I could manage. That’s how I became the clearinghouse for the hundreds of paper messages we sent directly to the legislators’ hands as they sat in session. Every time another stack was ready for the pages, I would say “Fly, little bundles of love!” like some manic Witch of the West.

I was surprised by the flood of tears that joy brought as the freedom to marry passed first the House, then the Senate. Sure, I cry with joy or beauty sometimes, but the sobs I tried to contain shook me with an unexpected force. One part was surely a release of tension coiled tightly over more than a year. Another part, though, was the crashing wave of love and possibility that swamped everyone who’d fought or longed for this most basic freedom.

No good campaign skips the big debrief at the end–the veterans are repositories of wisdom on what worked, what didn’t, and how to do it better the next time. So I need to take an inventory of what this movement has done to me.

I can both teach and be taught better than before. I listen more actively and empathetically. I’ve refined and reaffirmed some of my deepest moral and spiritual beliefs. I believe action can work. I can build unlikely coalitions. I found my true calling in issue politics. I can set effective boundaries to preserve my own resources, and I can defend them when challenged by a new, sudden need. I know more about community organizing and legislative politics. I have a base of beloved, lifelong friends. I feel perfectly comfortable in the halls of power. I have made Minnesota my forever home. I learned that our own personal stories can change the world.

I’m sleeping pretty well, but I wake up exhausted every morning. This is Day 8 of a skull-crushing tension headache. Fears I’m forgetting something important plague me constantly. Activities that used to leave me with a two-hour adrenaline hangover now make me tired before I even start. My threshold for sensory overload is so low, I’m having small meltdowns several times a day. I stop taking phone calls. I avoid friends.

I am burned out.

I’m excellent at being the little cog in a big machine, but I need a solid sense of the macro to stay motivated. But lately, everything’s been so myopic that I can’t see my place in the larger efforts I’m working toward, and it hasn’t been good for me. I feel myself withdrawing, and I don’t like being powerless to stop it. It’s crunch time, and I’m more disengaged than ever.

I called a dear friend for a lunch date, to ask him how he’s dealt with the burnout that must have been familiar in his super-intense job over the last year. Just seeing him makes colors brighter, but I need his advice, so I asked him how he manages to stay fresh over the long haul.

Some of that advice is expected. You have to set boundaries and practice saying “no.” Be at home when you’re at home. Put away the cellphone and computer. Make yourself present for your loved ones, and don’t feel guilty when you do something you love that’s totally unrelated to the greater effort. Self-improvement can wait. Feed your soul. Rest.

Some of his advice triggers an instant inner eyeroll, but I try to take it to heart, since I’m at such a loss with my own efforts. At the end of the day, take the time to write down one thing you did well. Accept praise. Don’t let doubts or second guesses stick around. Self-talk feels artificial, but it registers somewhere deep inside our brains, so do it anyway.

I’m someone who has a negative, self-critical tape on endless replay at varying volumes in her mind all the time. These are difficult steps to imagine taking. I realize that part of what’s made me feel insignificant over the last several weeks is a lack of outside reinforcement for anything specific I do. I don’t know what I’m good at. It’s impossible for me to ask for praise, but I’m starving for it. Recognition by another human that your inner intentions and outer efforts are registering in the world is absolutely necessary. My friend holds my hands and tells me how much love he always senses pouring out of me toward every person I meet. I cry a little; I’m tearing up again now as I write this.

In the grand scheme of things, the fact that I’m feeling burned out at last after over 14 months of non-stop effort and tension is only surprising in that it took this long. We all go through cycles of intense focus, followed by necessary disengagement. Only the daily grind of steady work is unnatural in this process, and constant effort is unhealthy and untenable.

But if I want to relight the fire that burns inside me for the work that makes me valuable in the world, I have to do exactly what’s most difficult right now. I need to reach out to other people for that moment of human connection. I need to remember what I love about what I do, and let others see that. I need to ask for help seeing the Big Picture. I need to accept praise, even from myself. I need to make plans and dream dreams for what happens after this work is done. I need to keep creating, whether it’s adding just ten words on a writing project, or prepping my garden for planting, or baking cookies. I need to let small joys accumulate.

Burnout is real and natural, but the solution isn’t smothering the fire. It turns out, the answer is letting others help you feed the flames.

It’s been an enormously trying week. I think The Onion best expressed the sheer exhaustion from what seems like a year’s tragedy, horror, and disappointment, at home and abroad, all packed into this short stretch of time. And while I have Many Thoughts on a variety of topics, none of them seem as important as this one.

I’m not a good sleeper, and neither are my sons. Whether it’s difficulty settling down their racing minds at bedtime or waking up from nightmares, they often need comfort and calm at bedtime. When I’m the one to do that, this is what I tell them. Maybe it’ll bring you comfort too.

*****

Everything is all right, my love. You’ve had such a long day, and you’ve been busy from one end of it to the other. You fill the walls of every single minute with such sound and activity, you wear me out just watching. But now, you’re done. There’s nothing else you have to do. Just rest.

Even if you can’t see Her, the Moon will be high above, all night, watching over you and me and everyone we love. She shines down that gentle light that lets us see where we’re going, but still enjoy the stars. I’ll be watching over you too, and Daddy, just like the Moon. Even when your eyes are closed, and all you can see are your dreams, we’ll be always be there.

The house is locked up tight and safe, and we have everything we need. Everything is settling into place for the night. All the games are played, all the words are read, all the songs are sung. There’s nowhere else you have to be tonight but right where you are. The only thing you need to do tonight, until tomorrow morning when you’ve had enough, is rest. And the only place we have to be in the morning is nature. And nature is never in a hurry. So just be still now, darling. I love you.

Today is World Autism Awareness Day, but autistics and many concerned advocates have done a great job of rebranding it as Autism Acceptance Day/Month. What’s the difference, you may ask? To many neurodiverse people, “awareness” and “acceptance” are as far apart as “tolerance” and “equality.” We don’t want past and current generations of people who are differently wired than our neurotypical family and friends to just subsist on the fringes until a “cure” is found for those not yet diagnosed (or even born).

But many of those neurotypical allies don’t really know where to begin when faced with the complex spectrum of autism-related traits and patterns, and I know they’d be genuinely mortified if they grabbed the wrong end of the facts and proceeded as informed.

So here’s a very short, very subjective list of places you can go to experience some of the range and diversity of autism. If you’ve found something you feel should be on this list, please leave it in comments! I’m always on the lookout for new resources! And if you don’t know where something you’ve come across fits on the range of positive voices, please don’t feel embarrassed to ask–wanting to be informed is the first and most important step for any ally of any kind.

Filmography

The documentary Loving Lampposts, available on instant Netflix in at least the U.S., does an excellent job of approaching its autistic subjects with sensitivity and a willingness to truly hear their experiences. I especially appreciated that it included role models who are non-verbal, showing the brilliant thoughts that speech alone is incapable of capturing for them.

The only “fictional” movie I’ve seen that does a good job with autism is the HBO docudrama Temple Grandin (based on the real life of the autism pioneer), but two TV shows, Parenthood and Alphas, portray their autistic characters in ways that have made me gasp, laugh, and cry with recognition and gratitude. Many people cite the new BBC series Sherlock for the Asperger’s-like characteristics the title character shows, but given his other egomaniacal and insensitive traits, he’s not exactly what I’d call a role model, no matter how brilliant he is.

Bibliography

There’s a wide and diverse array of books out there about autism, but I’m only going to recommend the ones I’ve personally read. A few are fiction, but most are memoirs of one kind or another. It’s amazing to see your own life in print without having written a word. And in general, while autistics have found many ways to manage their symptoms and concurrent problems like food allergies or other medical issues, back away slowly from any book that talks about “preventing” or “curing” autism.

A great alternative to Autism Speaks, which is to be avoided at all costs, is the Autistic Self-Advocacy Network (ASAN). Co-founder Ari Ne’eman works on behalf of the org to bring cases of abuse and discrimination to public attention, as well as to make autistic voices heard in the room for discussions of policy and programs all the way up to the federal level. Their motto is “Nothing About Us, Without Us,” and their website is a great resource for allies as well as autistic folks.

Both national and local branches of Autism Society are also generally positive, though some may be more or less dominated by parents and teachers of autistics, rather than autistics themselves. That’s something to gauge on your own; if you don’t hear from an autistic person within a few meetings or press releases, that may not be a great sign.

Religion is a tricky thing. I should know–on a variety of levels, I’ve been studying the features and interactions of religion since I was a little girl. In fact, I made a profession of it, quite by accident, as I’ve recounted before.

I love the history, the stories, the mythology, and the characters that philosophies and teachings accrete, like a snowball ends up a huge, mysterious matrix by the time it finishes rolling downhill. I love to explore the cracks where logic and theology don’t quite line up, and those places where history intrudes to point out the complicated horse race most multi-religious societies are. The Buddha ends up with saints and instant salvation; Mary ends up with blue robes and lions in her portraits. What a glorious, fascinating mess!

When it comes to my history, I’m a rigorous scholar. I insist on primary sources, whenever possible in their original language–that’s why I’ve learned to read in Latin, Anglo-Saxon, Old Irish, Old French, Provencal, Middle English, and a smattering of Welsh, on top of the modern German, Italian, Spanish and French which I can manage from basic source wrangling to full fluency.

I also insist on impeccably sourcing for those valuable secondary syntheses that integrate analysis with reporting. That’s the job of the historian: to report what they find and put together the patterns. If what you find doesn’t fit the pattern, it’s not a sign to throw it out–it’s a sign that your pattern needs some work.

But, as I’ve also written before, I’m a neo-pagan: specifically, I’m a Celtic-pantheonWiccan (all Wiccans are pagans, but not all pagans are Wiccans, not by a long shot–take Hinduism, just for contrast). I started as a self-taught Solitaire, thanks to the seminal work of Scott Cunningham, who made Wicca accessible to those without covens from which to learn. In college, I went in for formal training with a trusted teacher and work group, earning my consecration as a priestess so I’d feel worthy of requests to facilitate rituals in the future.

The trick with neo-paganism is the “neo-” part. While many early writers and teachers claimed a single, unbroken heritage with the “Old Ways,” the facts lead us to a different conclusion. Much of what Wicca’s founder Gerald Gardner (1884-1964) and Raymond Buckland (1934-), his disciple who brought Wicca to the US, was created whole-cloth based on their romanticized interpretations of ancient sources and a nature-based outlook on spirituality. All you have to do is look at a definitive archeological source, like Anne Ross’ Pagan Celtic Britain, to see how thin and open to interpretation the actual evidence is, compared with the richly embroidered tapestry of belief and ritual that early neo-pagans created.

They weren’t the only ones doing this: W.B. Yeats and Lady Gregory had started the ball rolling with their Celtic Twilight movement. Later, historians like Eoin MacNeill who was as much a revolutionary as a professor in early 20th-century Ireland did valuable work bringing together the disparate primary sources from ancient and medieval Ireland, but they processed the evidence through a strongly nationalistic lens so it fit their other efforts.

The facts for neo-pagans are these: There is no way to recreate a continuous tradition from ancient days to the present. We must be content to have fashioned a new, rich tradition of our own, and acknowledge the great deal of wishful historicity we’ve given it. We must also recognize what historians of early Europe already know: that even a single mention in a single source may have to suffice for evidence in societies where what scant written archives may have existed were burned in one invasion or another (thanks a lot, Vikings), leaving spans of 50-200 years without any written documentation.

The facts of my faith, on the other hand, are these: I feel a deep, ineffable connection to ancient generations through the rituals and beliefs I hold dear. I am part of an endless continuum of women and men who have marveled at the beauty of the waxing moon, or tasted the similarity between sea water and tears, or celebrated the first point at which the days become perceptibly longer. Nature is my religion, the forests my cathedrals, the fields and shores my pilgrim paths. That biology and astronomy and physics and geology all mingle to create the singular experience of life on this planet is all the mystery and wonder my soul needs.

These truths don’t rely on primary sources for validation. I can manage to be a good historian and a good person of faith at the same time, even though they should contradict one another. I’m content living in this paradox. For what I know, I want more sources than a single reference in a Christian chronology. For what I believe, I have everything I want.

Autism Speaks, I want to say that I won’t be lighting anything up blue in April. I won’t be donating money in any of the cans shaken by earnest coeds in shopping districts. I won’t wear a single piece of puzzle jewelry. I won’t be taking part in your walks, and neither will my son.

It’s too bad, really, Autism Speaks. Because my son and I are autistic, and we make fabulous spokespeople. Like many of our autistic brothers and sisters, we’re hyperlexic, so when we’re asked to speak, we do so way above our grade level. Our autism also gives us a natural enthusiasm, especially when asked to talk about the way the world looks to us, and we can describe clearly and concisely how our perceptions may differ from a neurotypical person’s.

The pink hair is not, sadly, part of my autism, but it is pretty awesome and it shows very well on camera. Too bad you won’t get any pictures of me participating in your orchestrations.

What I want to say to you, though, is very straightforward: I don’t need you to speak for me. I don’t need you to speak for my son.

Moreover, I don’t want you to. I don’t like the messages you send. By only having neurotypical board members, organizers, and spokespeople, you say autistics can’t speak for themselves and defuse the fear and confusion about life with autism.

By choosing a puzzle piece as your symbol, you suggest that autistics are incomplete or a mystery to be solved by someone else, instead of a pattern that is already intact and beautiful as it is.

By devoting a paltry four percent of your annual revenue to “Family Services” (that is, grants to families of autistics who need support for therapy and adaptive technology), you fail to help autistics right here and now.

The 44 percent of your revenue that goes toward research is almost solely dedicated to finding “a cure” for autism, preferably a prenatal test that would alert parents that their beautiful child will be wired differently than they expected. Your idea of a cure would solidify the public’s impression that autism is a life-ending curse.

And don’t even get me started on the fact that your fundraising, advertising, and administrative salaries exceed the percentage of revenue that goes both research and family services.

Instead of urging companies to “light it up blue,” why not ask them to train their employees on the nature of autism, and how best to help autistics who may be overwhelmed by the noise, light, crowds, and textures businesses use to entice neurotypical customers? Why not offer educational programs in the schools that give children the opportunity to see and question an adult autistic who thrives in their work and community? Why not raise money for respite care and better access to early intervention therapies that we know make a huge difference in the future success of autistic children?

The real quest of Autism Acceptance Month must be the quest to understand the beauty, complexity, challenge, and opportunity that autism brings. So keep your change in your pocket, and lace up your walking shoes to take the autistic kids of your family, friends, or neighbors out for a walk in the beautiful April air.

And most of all, let an autistic speak about autism. This may require listening very, very closely, or even reading texts or a chat program, because nonverbal autistics have important things to tell you too. Let them tell you about the flavors and textures and feelings that, while wildly overwhelming sometimes, are also rich and delightful. Let them tell you about what color the world is. Let them perseverate about their favorite things. Let them tell you how much they love you, in whatever way works for them.