Well I'm surviving. Living now on honeynut cheerios, chicken/turkey and noodles,apple sauce, and pbj sandwiches, and water... I'm so sick and tired of my therapist and the nurses at the dr.s office accusing me of devising a plan to lose weiight by fooling them into thinking I am sick so that I may be free to use all the laxies I can use. Well, I've got news for them. I am not faking. My sitz marker test prooves it, not to mention that my stomach xrays show my colon is completely full of crap, my stomach distension looks like that of a pregnant woman of 8 months. I have used every single darn chemical, high fiber, lax. there is with no results. My only relief is to use an enema once a day so that i may make room for today's meals. The pain is horrible on a scale of 1-10 it s at 8. The facial swelling and hand swelling makes me look huge. I'm very uncomfortable. I actually want to eat normal now. I've been to treatment 4 my ed. Why does almost everyone except those who live with me think that this is all about my eating disorder. I am terrified to death of surgery but I'm at my wits end. I mean I m 24 yrs,and I want my life back that's why i went to ed trtment because i was so sick of being controlled when i thought i was in control. I'm scared the doctors are just going to leave me in this horrible state, I can't take much more. SURGERY looks to be like the light at the end of a very long dark cold tunnel. I never feel good. I have to try very hard to keep my food down. It's like i have a lint ball in my stomach and everything (food) sticks to it and the ball gets bigger and bigger only it is poop. Its like a poop baby. People even ask am i pregnant, i want to cry. I am counting on this specialist dr. to be able to answer a list of questions, and identity my problem besides CI if there is and a permanent solution so i don't have to live like this much longer.

I go back to work tommorow. I am in pain, i havent went poop on my own in a month and half( i hv to use an enema everyday)

I don't know if this will ever get any better. I do know it can always get worse. I just pray that God will help me once and for all

once again. I know how you feel............................... very much so. and all i can say is if the dr dont tell you want you want to hear........see a different doctor. dont give up. i had my surgery for the SAME reasons you want it. and i am SO thankful i had it done. NO regrets yet. things are working great. lost my swelling in the face, hands, feet. and i feel so much better. i eat and poop it out with in a reasonable time.. so much better then before. i use to go weeks without pooping and it was awful. at my worst i feel just like your feeling now......... hated to eat because it just packed in there more, short of breathe, felt like i was so heavy . my stomach just hurt all the time. my ribs hurt alot from the pressure from the poop in there. my had twice the amount of colon a normal person has. i couldnt sleep on my left side bacause there was just piles of the colon on that side.

good luck let me konw how you are doing and when you find out from your dr....... dont forget to post. i pray for you that they dont brush you off like i was all my life. i am 37 and it took this long to finally get in and see what was wrong and then to get a dr who knows what is going on. and he is the best man in the world to me at this point.......... love him for listening and making me better