Blog created & maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly.

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DISCLAIMER: Please be advised that the resources, information, and advice given via our web or blog sites, the family-to-family resource network, our Facebook page, and any other online publications or discussions is not given by medical professionals. Instead this information has been a collective effort of parents/caregivers of children with hydranencephaly, as well as the research of individuals who are interested in contributing to our mission of educating and raising awareness. We ask that you use caution when utilizing this information in caring for your child, as we are not liable for any negative consequences that may occur. Children are individuals, what works for one may not work for another, therefore consultation with a medical professional should be sought prior to making changes that directly influence your child's health, medication, and/or treatment plans.