Children – Support

Children – Support

The organizations listed below provide information and resources on the diagnosis and treatment of sarcoma in children as well as information on programs that provide support to children with sarcoma and their families. We also provide information and resources for adolescents and young adults with sarcoma.

Organizations that Provide Support and Programs for Children with Cancer

Locks of Love
Locks of Love provides hairpieces to financially disadvantaged children in the United States and Canada under age 18 suffering from long-term medical hair loss from any diagnosis.http://www.locksoflove.org

SuperSibs!
The mission of SuperSibs! is to ensure that brothers and sisters of children with cancer are honored, supported and recognized – so they may face the future with strength, courage and hope.www.supersibs.org

International Confederation of Childhood Cancer Parent Organizations
The mission of the International Confederation of Childhood Cancer Parent Organizations (ICCCPO) is on the cooperation and sharing of information and experiences between parent groups around around the world, so that all can benefit from it and become more effective in improving the treatment and care of children with cancer in their own countries.www.icccpo.org/

CureSearch CureSearch unites the world’s largest childhood cancer research organization, the Children’s Oncology Group, and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Research is the key to the cure.www.curesearch.org

Childrens Cause
The Childrens Cause for Cancer Advocacy (CCCA) works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.www.childrenscause.org

Planet Cancer
The goal of Planet Cancer is to create an international network of young adults, ready and willing to help each other through what may well be the most difficult experience of their lives.www.planetcancer.org

Group Loop
Group Loop is an innovative and groundbreaking program of The Wellness Community (TWC) to provide online support for teens with cancer and their parents. In addition to Online Support Groups (OSGs), Group Loop offers valuable resources and information for teens with cancer.www.grouploop.org

Teens Living With Cancer
Teens Living with Cancer offers sound medical information, endorsed by the premier childrens cooperative oncology research group in North America. It also provides effective psycho-social support designed to enhance a teens quality of life, based on real-life experiences of teens with cancer, their families and friends.www.teenslivingwithcancer.org

LiveStrong Young Adult Alliance
The LIVESTRONG Young Adult Alliance is a coalition of organizations with the goal to improve the survival rates and quality of life for young adults with cancer between the ages of 15 and 40. The Alliance is committed to promoting research and the investigation of the problem, serving as a voice for the issue and promoting effective solutions.www.livestrong.org/yaa

Young Survival Coalition
The Young Survival Coalition (YSC) is the premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer.www.youngsurvival.org

Real Time Cancer, an Initiative of Young Adult Cancer Canada
Young Adult Cancer Canada is committed to building an independent and sustainable cancer resource that provides hope, understanding, and inspiration to young adults by delivering key positive messages and sharing personal experiences of the challenges and triumphs of cancer by those who have experienced this significant life challenge.www.youngadultcancer.ca/

Adult Cancer A summary of information on the incidence of cancer among adolescents and young adults along with information on current research published by the National Cancer Institute. The link downloads the report.planning.cancer.gov/disease/AYA-Snapshot.pdf (PDF)

Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer, Report of the Adolescent and Young Adult Oncology Progress Review Group A review of the research and care needs of adolescents and young adults with cancer. Published by the National Cancer Institute, the review examines the unique needs of adolescents and young adults with cancer. The link downloads the report.planning.cancer.gov/disease/AYAO_PRG_Report_2006_FINAL.pdf (PDF)

Closing the Gap: A Strategic Plan for Addressing the Recommendations of the Adolescent and Young Adult Oncology Progress Review Group An action plan for the research and care needs of adolescents and young adults with cancer. Published by the LiveStrong Foundation, this action plan builds on the findings of the National Cancer Institutes report Closing the Gap. The link downloads the report.www.livestrong.org/atf/cf/%7BD0794917-422C-499C-9C48-9ED3DDC42947%7D/LAF%20YAA%20Report.pdf (PDF)

Technique enables previously sterile adult survivors of childhood cancer to father children A short paper from the American Society of Clinical Oncology
Journal of Clinical Oncology, March 14, 2011.Fathering children after Cancer (pdf).

Camp Mak-A-Dream
The mission of Camp Mak-A-Dream is to provide a medically-supervised, cost free Montana experience, in an intimate community setting, for children, young adults and families affected by cancer.www.campdream.org

Do you have excess unused medical supplies?

Afya Foundation – The Afya Foundation is a public health non-profit that recovers surplus medical supplies and equipment for a variety of sources to promote ongoing health initiatives in the developing world. They have recently launched an initiative to involve childhood cancer patients called Kids Help Us Help Kids. This program is a way for children who are sick to be able to give back to others in need. As these children progress through their treatment and recover, they want to give them this opportunity. Kids can give their extra or no linger needed supplies to children receiving care abroad. The sense of empowerment and benefits that will come from this experience of giving are priceless. By working together, everyone can make a significant difference in reducing unnecessary waste locally while building access to health abroad. Donations can be sent to (indicate on the outside of the box that it is for Kids Help Us Help Kids Program): 140 Saw Mill River Road Yonkers, NY 10710