Just a girl interested in learning more about these horrible diseases, and just maybe help some one else out along the way!

Thursday, May 6, 2010

A multitude of doctors and still

in the same place? I guess that is not a bad thing, but it is also not a cure. :) The new doc I saw about CCSVI said he did not think I had CCSVI. He also said he did not know alot about it but he just did not see enough there to say I had any blockages like he would think they would be looking for.....

I also had my 3 month with the neuro. She is sending me to have a full MRI set done. Things are not as good as they have been in the past and I am not sure if this is from new stuff or possibly from no longer taking Betaseron. She did not want me to start back on the shots yet, and said to wait until we see what the MRI shows. Some days it all feels like we are starting back from day one with this crazy disease. I know I could be so much worse off, and I am blessed that I am not, for sure! Wonder if they will ever find out what it truly is.....speaking of, Ken rode the Bike MS Frisco to Ft. Worth this past weekend and he rode 85 miles. The weather was perfect! We thought it was going to storm but it passed around and turned out to be so nice. He had planned to ride 75 more miles on the next day, but I had to leave town for a funeral and his knees were bothering him as well. All in all the ride was very successful - he made it 30 more miles than last year.