Panorama - disabled or faking it? BBC2 8.30pm tonight

7/30/2012 12:06:00 am
BenefitScroungingScum
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Panorama has revealed evidence of disabled or sick people being cleared as fit to work by the Government’s Work Capability Assessment in spite of medical advice given by their own GPs.

Professor Harrington, the man appointed by the Government to review the assessment, told the programme that the success of the test is ‘patchy’ and that as a result, people who are genuinely unable to work will suffer. He says:
“There are certainly areas where it’s still not working and I am sorry there are people going through a system which I think still needs improvement.”

Over two and a half million people in the UK are required to take the test because they are too ill to work. The contract between the Department of Work and Pensions and Atos Healthcare, who conduct the Work Capability Assessments, is worth a billion pounds and runs to 2015. However, more than 176,000 cases go to appeal tribunals each year, costing the taxpayer an additional £50 million. Almost a third of these cases are overturned.

Neil Bateman, a Welfare Rights Advisor says that his success rate for appeals is much higher and that the system is badly flawed:
“I think I’ve won all of the appeals so far. 80-90% with experienced advisers is quite common, which is ridiculous that we’re getting such a fantastic success rate. The way they gather the evidence and the quality of the decision-making is badly wrong.”
Stephen Hill was sent to his first Work Capability Assessment in 2010 when he gave up his job as a sandwich delivery man after being referred for tests on his heart. His wife Denise was with him at the assessment. She says:
“She checked him out. She did his blood pressure and his heart and said to see a doctor as soon as possible.”
Steve did and was immediately referred to a consultant.
However, when the ESA results came in, despite the fact the assessor had recommended he urgently see a doctor, Stephen had been given no points in the assessment, and subsequently found fit for work. In the meantime, medical consultants had diagnosed him with heart failure.
Steve won his appeal but this was followed up with a demand to return for another assessment.
“He got a letter for another medical and I couldn’t believe it,” says Denise. “He’d got to go for a medical when he was waiting for a heart operation.”
According to Denise, the second assessor was more interested in a problem with Steve’s knee than his heart. Once again he was awarded zero points and the assessor wrote in Steve’s report that “…significant disability due to cardiovascular problems seems unlikely.”
Steve’s family say that the second assessment decision started to affect him in an unexpected way. His son Shane says:
“He started doing more. He started thinking, well I must be ok now, I must be fit for work if they’re telling me I am. On Boxing Day he hoovered the car out and as he was taking it back into the house, that’s when he collapsed and had his heart attack and died.”
Stephen Hill died 39 days after being found fit for work. Shane Hill says: “You believe doctors are right so it doesn’t matter who’s doing the assessments.”
However, Steve Hill may not be a one-off. Between January and August last year, an average of 32 people who the department of work and pensions thought could be helped back to work died every week.

Panorama spoke to an Atos Healthcare professional who carries out the test. They are afraid to be named because of a confidentiality agreement with Atos but told Panorama that the Work Capability Assessment is too rigid.
“There are people who you would like to be able to award ESA [Employment and Support Allowance] to but you can’t. If you are doing it absolutely honestly, they just don’t get the points you know, that’s it, they’re stuffed.”
Atos insiders say that they’re also under pressure to see eight patients a day and with the paperwork around each examination, it could impact on the Work Capability Assessments. “We’re under pressure to see eight patients a day, even if it’s impossible to do. I’d like to think that the quality of my work is consistent but time pressure doesn’t help.”
In a statement to Panorama, Atos said that their staff “carry out thousands of assessments every month in accordance with detailed guidelines as set by the Department of Work and Pensions… Any serious suggestion that our work has fallen short of the high standards we set ourselves… is investigated as a matter of course.”
However, local GPs like Chris Johnstone believe that they’re left to pick up the pieces when patients fail assessments. He says that the test - far from saving the Government money – is adding to NHS costs in poor areas.
“We are busy at the best of times and we are now having to fit in more people whose appointments are more for their benefits than they are for their health.”
Staff at the Maudsley Hospital in South London feel that they’re picking up the tab for a system that has gone badly wrong.
Andy King has bi-polar disorder and had already been feeling unwell when he was told he would have to be reassessed for ESA.
“That was quite a blow. I thought I might lose a big part of my benefit… and that’s what resulted partially in me being admitted to the Maudsley in mid November.”
Andy had been sectioned under the Mental Health Act and spent time in the hospital catatonic and unable to speak. The decision about his claim was made without him being seen – he was put into the Work Related Activity Group, which means that he was to be supported back into work.
The dedicated welfare team at the hospital appealed the result of the assessment and won.
Shelley Leckey from the Maudsley Welfare Team says they’re now overwhelmed with helping people like Andy appeal wrong decisions.
“We’re having to call upon the resources of the doctors and nurses, and social workers, to put everything together to send off to the Department of Work and Pensions.”
The government says that the system is being improved and assessors are getting new training in working with vulnerable people.
But according to Professor Malcolm Harrington, who recommended that training, there is some way to go.
Panorama: Disabled or Faking It? will be shown
on Monday at 8.30pm on BBC One.
Ends
Should you use any of the above information, please credit BBC Panorama.

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Q: When is a target not a target? A: When its a statistical norm #OnTheSick

7/27/2012 09:03:00 am
BenefitScroungingScum
30 Comments

Details have begun to leak about the Dispatches investigation into the Work Capability Assessment scheduled to air on monday night, then followed by a Panoram investigation into the same subject. Dispatches report that they have sent an undercover GP, Dr Steve Bick through the complete Atos training process filming undercover.

As news leaks, reputable news outlets are reporting that this shows this must be proof of targets built into the WCA system, presumably in the contract the DWP issued to Atos. However, this is not quite the case, what is being reported based on evidence from undercover investigation is 'targets that aren't targets', ie statistical norms. What this means is that there are effectively targets built into the system, but they are targets that are not technically targets because the targets seem to be being imposed by a potentially false baseline average, for which there appears to be no source of original data or evidence at this time.

This means there are essentially two possibilities; either the government, DWP, ministers and Atos have all repeatedly lied on record about the existence of targets, or they are telling the truth and there aren't actually any targets, because they aren't called targets, they are called statistical norms.

Atos are an international IT company, their business has been built upon using systems of statistical norms to determine trends. This can be seen as acceptable if for example Atos were running the contract for a telecoms system. A company who want to understand the different types of phone calls made at different times would clearly benefit from this kind of statistical analysis, which is presumably why telecoms giants use the Atos systems. However, human beings, particularly sick, disabled and vulnerable human beings do not fit neatly into any kind of statistical system. It is impossible to predict who will come through the door in any given day to see an HCP for their WCA, quite unlike telephone calls which tend group into averages - the way we see reflected in the kind of special deals offered by British telecoms companies who use such data to offer cheap calls after 7pm.

The consequences of getting the baseline figures wrong to work out an average for telephone calls might be significant financially for businesses, and impact on consumers by skewing the 'special deals' based on these averages, but they do not have the potential to have a devastating harm on individual lives in the way those exact same averages do when used to assess sick and disabled people for eligibility for benefits.

So, what really happens on the frontline for those being assessed for benefits and those doing the actual assessments?

A system of statistical norms is used to ascertain how many people a health care professional assigns to the different eligibility groups in Employment Support Allowance; the support group for those most unwell and not expected to perform any work, the Work Related Activity Group for those expected to be able to do some work at some point in the future, and those found fit for work. Using these 'norms' or averages, Atos monitor closely each HCP's performance, and as explained by Dr Bick, any who assign more people to those groups than the norms suggest they should are then audited.

Although I have been unable to find any evidence that HCP's are fined or formally disciplined for putting too many people in the support group, it is clear that frontline workers see this as a punitive process and are constantly attempting to juggle the requirements of the claimants they assess with the requirement to stay within a statistical norm. This average appears to be based on national rather than regional data, so an HCP assessing people in Croydon would be held to the exact same average that an HCP assessing people in the Outer Hebrides would. That's quite an extreme example, but demonstrates that using a system of averages creates a skewed picutre as it does not account for regional variations in population size, health conditions and the local economy.

At this time, no-one knows what original data these statistical norms, or targets that are effectively targets, but just aren't called targets, are based upon. It may be that data originated from the DWP, based upon guesstimates from the old Incapacity Benefit claims, but it may be that Atos only ever had access to an average data sample to build their national averages upon. Frankly, unless the DWP and/or Atos radically alter their stance and start communicating clearly about the details of the WCA system and outsourcing process then we may never know the answer to this key question.

The next question is of course whether these 'norms' take any account of different conditions, ie are there different sets of norms for people with Mental Health conditions, fluctuating conditions, sensory disabilities or Learning Disabilities? The answer is presumably not, as HCP's, confirmed by DWP and Atos quotes are outlining a simple one system of averages based upon crude numbers of total people seen.

That would lead us to wonder, how can a norm possibly be a norm for an overall client group without accounting for all these different conditions? Perhaps the DWP or Atos will see fit to share the answer to that question, but I shan't be holding my breath waiting.

Then that leads us to some even bigger questions, the DWP record outcome data for WCA's, to use as part of the official statistics relating to the benefit ESA. This data is of course based on outcomes from a system which uses Atos assessments held to unverifiable in origin norms, decisions almost always confirmed in practice by the DWP.

So, if the whole assessment system is based on a system of averages that have no regional or condition related breakdowns in them, then that flawed system is used to measure the official figures of those eligible for benefits we then have some very serious questions to ask about the validity of those final figures. Figures remember that seem to be built on an average assumption of how many people should receive a particular level of benefit, without ever leading us to the original data, if any, used to predict these outcomes.

This could mean that four years on from the introduction of a benefit which has caused terrible distress and fear to sick and disabled people having to claim it, been implicated as a factor in multiple suicides and used to make presumptions about work and growth figures has been based on nothing more than a guesstimate, that became an average, that became a norm, which became a target that isn't a target.

30
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John Pring's Disability News Round Up - 20/07/2012

7/26/2012 10:03:00 am
BenefitScroungingScum
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Disabled people’s independence could be
jeopardised by the government’s planned cuts to disability benefits,
according to a leading Paralympian.

Disabled people are set to play a prominent and
public part in both the London 2012 Olympics and the Paralympics, after
organisers revealed that they would make up five per cent of the huge
volunteer workforce.

One of the pioneers of the independent living
movement has warned the government that its decision to shut the
Independent Living Fund in 2015 could force thousands of disabled people
out of their homes and into residential care.

The minister for care services has admitted
“mis-speaking” after he appeared unaware that a fellow minister had
already published the long-awaited consultation paper on the future of the
Independent Living Fund.

The Department for Education has rejected a key
recommendation of the equality watchdog’s disability hate crime inquiry,
which could have undermined the government’s anti-inclusion stance on the
education of disabled children.

The government is seeking to delay major parts of
a new European regulation that would have given powerful rights to
disabled bus and coach passengers.

The death of a young woman who killed herself
after being found “fit for work” is the latest proof of the catastrophic
consequences of the government’s cuts to disability benefits and services,
say campaigners.

Disabled activists have held a “paupers’ picnic”
in the lobby of the Houses of Parliament, to draw MPs’ attention to cuts
they say are leaving many disabled people without enough money to feed
themselves properly.

The success of London 2012 will be judged on
whether London’s transport system allows disabled people to travel easily
to watch the events, according to one of Britain’s top Paralympic powerlifters.

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Important News From Benefits And Work

7/25/2012 08:42:00 am
BenefitScroungingScum
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A few weeks ago, when the DWP tried to stop claimants seeing a useful employment
and support allowance (ESA) appeals video, Benefits and Work readers helped make
it the most popular video the ministry of justice has ever produced and spread
it across the internet.

Now, it seems, the DWP are trying to prevent
claimants giving evidence about how fairly Atos and the DWP are treating them.
This evidence is vital for millions of people because it will affect both ESA
and disability living allowance (DLA) when it becomes personal independence
payment (PIP). So, once again, we’re asking for your help to stop the DWP
getting away with it.

In this edition we also ask who is lying about
ending the right to have your ESA medical recorded?

We also tell you
about the two page letter you can copy and paste to give yourself the best
chance of getting your audio-tape.

Finally, there’s news of two upcoming
TV investigations into the work capability assessment (WCA), one of which
includes undercover filming of Atos.

MISSION ALMOST
IMPOSSIBLEProfessor Harrington has made a call for evidence for his
third review of the work capability assessment. He especially wants to hear
from claimants about whether all the changes he has introduced mean that Atos
and the DWP now deal with you more fairly and effectively.

Yet,
astonishingly, there is nowhere for claimants to answer the questions he puts to
you. Instead, the DWP have buried the questionnaire in a .pdf file which cannot
be written to unless you own software costing hundreds of pounds.

The
only way claimants can take part is either by printing off the document, and
then writing the answers by hand and posting them to Harrington or by trying to
copy, paste and reformat all the questions into another document to create their
own questionnaire.

In addition, the call for evidence went out just
before the summer holidays and ends on September 7th, just as schools go back.
This means that it has attracted very little attention from charities and other
organisations that might otherwise be encouraging claimants to get
involved.

The DWP and Atos have faced ever growing criticism
of the WCA, with even GPs calling en masse for it to be scrapped and two TV
investigations of the WCA being broadcast next week. Their response has always
been that they are putting into place all Harrington’s recommendations and that,
as a result the WCA is greatly improved.

If you agree that it has got
better it’s important that you show your support for the changes to silence the
critics. If you think it hasn’t, then it’s equally important that you make it
as hard as possible for Grayling and Iain Duncan Smith to use Harrington as a
defence.

There’s a series of questions about issues such as whether
telephone and written communications have improved, whether medical examinations
are better and whether the WCA is now fair and effective. There’s also an
‘anything else’ box you can use to address issues like recording medicals and
waiting times, for example.

Harrington particularly wants to hear from
claimants who have had more than one WCA, but he does also want opinions on
fairness and effectiveness from claimants who have only had one.

And
because personal independence payment, which begins replacing DLA from April of
next year, is assessed using a very similar system to the WCA, whatever
advantages or failings there are in the WCA will almost certainly be reproduced
for DLA to PIP transfers. Because of the dramatic effect that DLA/PIP in
particular has on living standards, your evidence could literally change
people’s lives.

So, if you’ve had a WCA, please complete the
questionnaire. And if you can post details on forums you use, forward this
newsletter to a friend and ask any charities you’re involved with to encourage
members to take part as well, we can ensure that Harrington hears the
truth.

TWO TV INVESTIGATIONS INTO THE WCAThanks to
Benefits and Work member papasmurf for alerting us to two programmes about the
WCA both being broadcast on Monday 30 July.

Disabled or faking it? 8.30pm,
BBC2 “Panorama investigates the government's plans to end the
so-called 'sick note culture' and their attempts to get millions of people off
disability benefits and into work. In Britain's modern welfare state, millions
are being paid to private companies to assess sick and disabled claimants but is
the system working? Or are new tests wrongly victimising those who deserve
support the most?”

Aside from
the lack of recording equipment, the biggest issue at the moment is whether you
can have your WCA postponed if you’ve asked in advance for a recording, but the
equipment isn’t available. Grayling keeps reassuring MPs that this is the
case.

In the meantime, while Atos will do all that they
can to accommodate requests for audio recording there may be times when the
service cannot be offered, for example where it has not be possible to get
access to recording equipment on the date/time of the WCA. In these
circumstances clients will be told in advance that their request cannot be
accommodated and offered a later date.

“We will make every effort to accommodate requests for this service
and hope that we will be able to meet demand. However, under the terms of our
contract with the Department, we cannot postpone an assessment on the basis of
audio-recording.”

And we continue to hear from members who have been
refused a recording and told they must still attend their medical.

We are
taking steps to discover whether the DWP have indeed issued instructions to Atos
not to postpone medicals.

Meanwhile we have produced a two page letter
Benefits and Work members can copy and paste to ask for their medical to be
recorded and warn of the possible consequences of this request being refused.
It draws on parliamentary statements, the Equalities Act and an Upper Tribunal
decision.

The letter is included in the latest editions of our guide to
the WCA and is also downloadable in text format for easy copying and pasting in
the ESA section of the members area.

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John Pring's Disability News Round Up - 13/07/2012

7/17/2012 09:14:00 am
BenefitScroungingScum
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The opportunity to celebrate disabled people’s
diversity has been “stolen” by organisers of the Paralympic torch relay,
according to a leading disabled people’s organisation.

The government has finally confirmed that it
wants to close the Independent Living Fund entirely in 2015.

Disabled activists have reacted angrily to the
government’s decision to delay reforming the funding of adult care and
support.

A national eligibility threshold for care and
support will be introduced across England from 2015, ministers have
announced.

Many working-age disabled people will receive
free care and support for life – whatever their levels of wealth or income
– when the funding of care and support is finally reformed, the government
has promised.

Disabled people who want to overcome the barriers
they face in seeking elected office will now be able to apply for financial
support from a new £2.6 million government fund.

Just nine of the 36 sheltered Remploy factories
that were set to be shut in the first wave of a government closure
programme could be kept open under new ownership, a minister has
announced.

The government’s radical “simplification” of the
benefits system is likely to make the future “considerably bleaker” for many
disabled people, according to the peer leading a new inquiry.

The government looks set to maintain the current
focus of the blue badge parking scheme in England on disabled people with
significant physical mobility problems.

Disabled activists have paid a series of
emotional tributes to Nick Danagher, a central and much-loved figure in
the disability movement and an “independent living revolutionary”, who
died suddenly on Friday (6 July).

An award-winning performer whose work is set to
be one of the highlights of the London 2012 disability arts festival is
hoping this summer’s artistic and athletic celebrations will demonstrate
the “normality” of being a disabled person.

One of Britain’s hottest prospects for Paralympic
gold on the athletics track has spoken of her hopes that London 2012 will
lead to more opportunities for disabled people outside the sporting arena.

3
comments:

Past Caring? WeAreSpartacus Report On Worcs #socialcare

7/12/2012 08:55:00 am
BenefitScroungingScum
5 Comments

The latest report from the WeAreSpartacus team is released today. Past Caring is an investigation into the proposals to return to a higher use of residential care by Worcestershire. (summary, full report) This report is further evidence giving lie to the Coalition's claims that they promote further independence for disabled people and believe in a 'social model' approach.

Although the results of the consultation will have a dramatic impact on the ability of Worcs residents to live independently, and potentially be seen as setting a precedent for other local authorities to follow, typically the consultation is rushed and inaccessible, with Worcs only providing a postal address for responding.

It's a further questionable decision from Worcestershire who last year had to spend £5,000 on replacing city centre blue badge parking bays they'd spent £250 to remove and replace with a taxi rank 3 years earlier despite local campaigners objections. Though the £4750 spent on replacing blue badge bays may seem a trivial sum compared to the amounts considered in Worcs Maximum Expenditure Policy, its a good illustration of the money wasted by local authorities who don't consult local people properly and therefore end up making unpopular, expensive decisions which later have to be rectified at vastly higher costs than the original.

Press Release follows;

New council policy condemned as ‘flawed and wrong’ as national campaign group publishes report onWorcestershire care changesIn the wake of the white paper on social care and in light of recent uncovered abuses such as Winterbourne,Worcestershire County Council’s proposed changes to care for disabled people in the county have beencondemned as ‘flawed and wrong’ by a national campaign group which has published a new report on theproposals.

‘Past Caring’, which has been published by the research team at the WeareSpartacus campaign group,analyses the county council’s proposals for a ‘maximum expenditure policy’, which would impose a cap,meaning that anyone needing significant amounts of support may have to go in to residential care. As well ascriticising the council’s current consultation exercise, the report shows the new policy:

Will mean disabled people get less support

Will mean a deterioration in care standards and quality of life

Could lead to disabled people forced into residential care, even if they don’t want to

Could force disabled people to rely on charity for the help and support they need

Goes against the recommendations of the Government’s flagship white paper on social care reform

Could be open to a legal challenge

Dr Sarah Campbell, one of the report’s authors, said:“We know that times are hard; disabled people in Worcestershire and across the country are being hit bycuts to benefits and social care services. But the county council’s approach is flawed and wrong. Flawed,because any ‘maximum expenditure policy’ will have a series of knock on effects for health and social careproviders which may end up costing even more; and wrong, because disabled people should be encouragedand supported to live safely independently.“Institutionalising disabled people is not the answer to the social care crisis, in Worcestershire or anywhereelse.”

The report acknowledges the challenges facing local authorities across the country, but also highlights theprinciples of independence for disabled people, including a right to choose where and how they live, be partof their communities and have control over their day to day lives.

Jim D Smith, Secretary of Worcestershire Coalition for Independent Living, points out:"In a week when the Queen visits the County to open a new £60 million library it’s sad to reflect that thelives of some individuals in the County are threatened by such negative proposals. These proposals, ifimplemented, will undermine a generation of progress towards independent living and cause real mentalanguish for individuals and families.”

Local resident Steve Sumpter adds:“The council needs to be more active with its consultation, and respond to the searching questions it’srefusing to answer. But disabled people, their friends and families also need to speak up. The consultationfinishes later this month (July), and it’s crucial their voices are heard. It’s also vital they contact their localcouncillors and MPs to express their views before the final decision is made at the end of September.”

ENDs For further information, contact Sarah at research@wearespartacus.org.uk

5
comments:

Atos, DWP & JC+ - the unholy triumvirate, guest blog by @hossylass

7/11/2012 07:03:00 am
BenefitScroungingScum
6 Comments

Hear no truth, see no truth, speak no truth. Or how the DWP, Atos and the JobCentreplus can’t lie straight in bed together.

15 years ago today I got up early, full of joy. I drove to my fantastic job, laughed with my super funny workmates, and then rode my beautiful horse. Ok I wasn’t rich, my car was rubbish, and my income and expenditure were in constant conflict, but I had no debt and I had a career I hoped to stay in for life.

Today I awoke again in tears; nightmares and pain combining to stab my dear friend Fortitude to death. Yep, I knew it was going to be shit. Just like yesterday, just like tomorrow.

Except todays shit was a slightly different variety. Today I was to meet with a nice man who promised that he would help sort out my council tax and prevent me going to jail. That seemed like a mixed blessing to be honest – I only have one unit left of my OU degree to do, and 90 days of solitude may have just swung things in my favour.

I have my doubts – after all there would be a library in jail. Just think, 90 days of clean sheets, cooked meals and library books… and you don’t even have to get up to open the door! Wowzer indeed.

But before the very nice man arrived, I decided to do the thing that had gotten me into Cloaca-Ville in the first place, and open my post. There was the now seemingly twice weekly missive from my MP, but this one was more dismissive than anything else – “I have forwarded your complaint to the relevant person at the DWP”.

Humph. Its irrelevant anyhow now Mr MP, as Atos have seemingly got the message and given me the answer via their website. Bless ‘em – who says that they don’t care? Apart from about 2 million sick and disabled people.

It’s a lie – Atos DO care, especially about getting blamed for stuff that clearly isn’t their fault. A bit like sick, disabled and unemployed people being blamed for the economy, and poor people being blamed for being poor, Atos catches crap for the DWP.

Now Atos are not without their faults. To my mind they have been a ickle tiny bit spineless and rolled over a little bit too much in their fawning to the DWP. And in return for their submission they have been savaged.

Atos DO have to pull it together as a company, they DO have to remove the renegade examiners and they DO have to find and remove the political statement that appeared at the front of their handbook , where “removing sick and disabled people from benefits was the right thing to do for the sick and disabled…” (I paraphrase, but it certainly set the tone).

So after spending a few seconds rolling my eyes about the DWP, I found a scummy brown envelope, from the DWP. Oh deepest sodding joy.

I think at this point I recognised that I must be either pretty low, drained of emotion, or dead, as my heart failed to reach the usual 3000 bpm when confronted by the DWP envelope.

So I did what every sick and disabled person does, and squeezed it a bit.

Now was it a form? Nah, too thin.

A standard letter? Nope, a bit too fat.

Contemplated that it could have been a pizza, but abandoned that idea when no tomato sauce oozed from it.

So mainly out of curiosity, and the fact it was addressed to me, I opened it.

Well what a marvellous surprise – apparently I had been voted the DWP claimant of the year and had been given a pair of first class around the world tickets, stopping at three destinations of my choice!

Well no actually I hadn’t. It was in fact my pre ESA50 klaxon bomb warning.

Now I wish I had recorded the conversation for training and fact verification purposes, because what was revealed was a bit odd…

Going back to my MP, what I had asked was regarding the vague wording on the nice “Help” form from Atos. This nice “help” form is a QR1 03/11 and confused me with its vagaries of sending in medical documents with the ESA50 to support your claim.

However kindly and compassionate Atos have cleared this up for me, so armed with that fact I phoned the Jobcentreplus number as instructed on my letter.

Me: Hello

Them :Hello {dynamic so far}

Further conversation regarding them sending me an ESA50…

Me : what date will you send it, as I am going into hospital for 3 weeks…

Them : that’s ok, just tell us and we will send the form there.

Me: But what if I am there and then you send it here?

Them : tell us when you are going in and we will send it there.

Me: I don’t know when I am going in – this is rehab, so it could be short notice.

Them : we can send it there.

Me: But I might be there and you send it here – can you not give me an idea of when…

Them: No.

Me: If I am in hospital, how will I get the medical evidence I need to fill out the form?

Them : You don’t need medical evidence – you just tell us on the form how your disability affects you.

Me: I’m not that disabled, I am incapacitated with a condition that makes me ill and disabled.

Them: Just fill out the form

Me: But I can’t cart my entire medical evidence around with me, and I don’t know if I will be able to fill the form out in rehab…

Them : we can send it anywhere and you have four weeks to fill it out.

Me: But you may have sent it, and I may then get the rehab, but the form may be in the post. I will be in rehab for three weeks, and then there is the delay in posting, and I won’t have my medical evidence with me.

Them: Look, you don’t need medical evidence; just give us the name of your GP and any consultant if you have one.

Me: I do need medical evidence. Both Atos and the DWP state that people need medical evidence.

Them : You don’t.

Me: Are you sure, because both the DWP and Atos talk about submitting medical evidence on their websites, and I wouldn’t like to get it wrong…

Them : No, just fill out the form, telling us about your disabilities and how they affect you.

Me:OK

So no medical evidence needed according to JC+.

(Do you know, for ages I thought that was some Christian reference?)

But I had seeded it, on that QR1 03/11 form… it said “If you have any medical documents that you think will support your claim, send them in with your questionnaire. For example, this could be a medical report from your Doctor, Consultant or Support Worker.”

So in an act of faith in the new shiny Atos I checked their website;

If you are claiming Employment and Support Allowance (ESA) or you have been notified that your Incapacity Benefit claim will be reassessed under ESA guidelines, you will be sent a medical questionnaire (ESA50) which is your opportunity to explain how your medical condition impacts on your daily life.

The questionnaire is a DWP document and is an important part of your claim so you should try to fill in as much detail as possible.

If you have any medical documents that will help Atos Healthcare with its assessment or the DWP Decision Maker to understand how your condition affects you, please forward copies to us, with the completed questionnaire in the envelope provided.

For help in completing the questionnaire, or if you have questions about it, please contact the office of Jobcentre Plus handling your claim.

But, but, but… I have got medical evidence, but the nasty lady said I didn’t need it!

The nasty lady was quite clear about that. (She wasn’t that nasty, she was just adamant that I didn’t need medical evidence, even if I had it).

I am assuming that the JobCentre Plus recorded the call for training and fact verification purposes. In fact I am really, really hoping they have. I am also hoping that tomorrow, when I phone them again, I get the same message.

So whilst Atos, clutching a white dove in their teeth, have offered up a clarification, it appears that the Job Centre is still trapped in 2008 and not updating their scripts.

After all, they wouldn’t chose to misinform their clients now – would they?

15 years ago I woke up to a beautiful, simple, rewarding world.

Today I had to beg a stranger to keep me out of jail, and listen to another treat me like a muppet, in the full expectation that the next few weeks are not going to be in any way life enhancing, and possibly incredibly, phenomenally, a rogered-up-the-arse-by-an-angry-elephant-type vile experience.

And I have yet to search for the truth of the official DWP line, the Grayling line, The Miller line, the IDS line, the Circle to District line, the line in the sand, the line I have crossed and finally the scum line around the bath – though I suspect that elusive Scarlett Pimpernel “Truth” has fucked off round the world on my prize winning tickets.

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comments:

Why? Because They Can #winterbourne

7/10/2012 10:51:00 am
BenefitScroungingScum
6 Comments

This blog was sent in for publication by 'an anonymous parent'. To help people try and understand from the perspective of the person with learning disabilities as well as the parent I've reproduced 'Imagine You're Four' below the guest blog.

Cover up

Epidemic

Why?

Because they can

Wide spread shock and anger what happened at Winterbourne.

Viewers shocked by Michael and Jean’s story line in Eastenders how people can manipulate others.

And yet it is happening all over the country every day.

Everyday parents are speaking up as to what is happening and yet no one believes them because of the outdated attitude of what it’s like to be a parent of person with a disability. Over protective. Over emotional. Mad. Depressed. Stressed. Demented. So you’re not credible. You don’t know what you are talking about. It wasn’t like that. Your childdosn’t speak – so how do you know! Your child has a disability so what they are saying can’t be true.

Out of date stigma and stereotyping.

Staff who believe in dignity and value don’t speak up for fear of their jobs. And so the cover up continues. Other staff have been institutionalised. Or just don’t believe in equality. Or believe they are doing a brilliant job and they are the experts. They don’t call in outside intervention when it is needed. They lie.

Chemical cosh.

Babysitting.

Cuts.

Recession excuses.

The CQC go in and inspect but as staff are in league with each other to keep their jobs it is an easy white wash. It’s a tick box exercise. The CQC need to wise up.

A huge change in culture and training is needed to up skill. Raise expectations. The right attitudedosn’t cost anything.

Respect.

The way forward. Collaboration and partnership working between people with disabilities, their families, advocates, providers and commissioners.

Imagine you're four.
You love your parents, your friends, the way the light comes through
your curtains early in the morning, twinkling on the walls while you
wait in your princess room patiently for mummy and daddy's
wake up time. Your favourite things are pink ballons and fairies, when
it's all a bit confusing around you you know you're safe as long as you
can catch sight of those pink flashes and know mum and dad are close.
You love to give cuddles, hugs so tight there's no room to wiggle and
when you get excited you rock back and forth from foot to foot, arms
spiralling joyfully.

One day a new clipboard lady comes to see your mum and dad. You see them
cry and decide you don't like this clipboard lady, you wonder where the
clipboard lady you remember has gone. Mummy and Daddy are sad so you
hug them then fling yourself to the floor and scream so the clipboard
lady will go away. It works so next time you decide to scream louder and
kick your feet harder to be sure she'll go before your mum and dad cry.

Next time the clipboard lady comes with lots of other people to take you
away. Lots of big words you don't understand like 'aggressive'
'confrontational' and 'care order' float around the room and you can't
see your pink balloons so scream and scream. Mummy and Daddy cry and
tell you to be a good girl, that you'll love your new home, it'll be
full of your favourite things to do, they'll come to see you soon.

When you get there it's all scary and wrong. It smells funny and the
light doesn't wake you up in the mornings anymore. No-one knows you like
to be woken up by the light and they wouldn't care if they did. The
days are long, no painting or ponies like you're used to to fill the
time and no-one comes to give you cuddles when you're sad. You cry alot
and have tantrums. You're used to pink balloons and fairies when you
have a tantrum, but without being able to see that you just kick more
wildly, especially when the carers come to sit on you and hit you.

You might be only four but you can remember the important things Mummy
and Daddy spent 18 years teaching you. You know how to hold out your
hand and say 'NO!' in a loud voice if someone tries to touch you, to say
the police will come to look after you, to call out for your Mummy so
she knows to come to you. Mummy and Daddy were so proud of you for being
their big girl and learning these skills, you try to remember that as
you lie on the floor of your shower, surrounded by grown ups shouting at
you, throwing cold water all over you, sitting on you and choking you.
You cry and cry for your Mum but it just makes the carers hit you more.
Sometimes the nurses come along and you look at them while you're on the
floor, pinned beneath a chair, but then someone puts a blanket over
your head so you can't look at them anymore. The blanket's brown and
scratchy and you cry for your pink balloons while they hit you some
more.

You don't get days out anymore. There used to be a car and Mummy and
Daddy took you places with swings and slides. Swings, slides, light
through the leaves and being happy slip further and further away until
you're not sure there was ever a world beyond beige walls with no pink
to hide in to bear the slaps, pinches and pushdowns that are your new
routine. You're sure you remember your parents though and cry for them
every day. You don't know the reason they can't come to visit is that
now you're a hospital resident 80 miles away from home and the car had
to go because you're no longer entitled to the mobility component of
Disability Living Allowance and the Motability scheme. Mummy and Daddy
are getting older and they had to care for you instead of going out to
work. You don't know they're going cold and hungry now they're
unemployed not carers, you only know that no-one comes to see you except
the people who hurt you.

You don't know someone in the hospital did care. That they reported the
abuse you are experiencing repeatedly. To their manager, to their
manager's manager, to the Care Quality Commission. You don't know
because no-one did anything, nothing ever changes now, the torture is
your daily routine. You don't know the word for torture, but you could
give a better account of what it means than a prisoner in Guantanamo.

You don't know that in the world outside your torture chamber that
people talk alot about double funding, scroungers and fraud. Of
something called a deficit, the need to cut costs and protect the
vulnerable. You don't know that because all the talk is of stamping out
fraud and you're so vulnerable no-one knows you exist.