Category Archives: Uncategorized

The annual Bridge to Beach paddle race supports Fragile X Association of Australia. This year Shaw and Partners will help us reach our fundraising target of $10,000! Shaw and Partners is an investment and … Continue reading →

Each year our Annual Report is a great wrapup of the work we’ve been doing to increase awareness of Fragile X in the medical community, to provide support to individuals and families impacted by Fragile X, information about Fragile X-associated … Continue reading →

Following the Annual General Meeting of 11 November 2018, we welcome the new Board for 2018-2019 and in particular welcome two new volunteer directors, Kate McKeand and Wayne Pointon. Prof W Ted Brown, President Prof Brown MD is the recently retired … Continue reading →

Our news and events for 2018, to the end of October. Covering the visit to Australia by Prof Randi Hagerman, a new FXTAS clinic in Melbourne, a clinical trial in Australia, fundraising and family stories. FX Info_October … Continue reading →

From September / October 2018 Zynerba Pharmaceuticals is running a clinical trial in Australia in boys and girls with Fragile X syndrome, aged between 3 and 17. The trial sites are in Melbourne, Brisbane and Sydney. This a followup to … Continue reading →

A Fragile X-Associated Tremor Ataxia Clinic has recently opened at AlfredHealth in Caulfield, Melbourne. The clinic offers help in the diagnosis and management of people affected with FXTAS, and also has a research focus. The clinic operates on a Friday … Continue reading →

In August and September 2018, we hosted a series of presentations by Professor Randi Hagerman, Medical Director of the MIND Institute of UC Davis, California. LECTURES: Dr Hagerman’s lectures were videod and will be available on our youtube channel soon. Q&A … Continue reading →