Shannon is weak Type II, she never sit, roll, crawl. She is 4 years old, and have a G tube, rigth now is on AA diet, sleeps with Bi-pap and receive NIV protocol by Dr. Jonh Bach. But she is a very happy little girl. My home us full of wonderful things because of her. I support all the organizationsc and try to help other parents here, talking about SMA and how to help.