Sunday, April 5, 2009

These couple of days have been rough. Parker ended up getting RSV/cold last Tuesday and then ended up sleeping and being grouchy. We got past that, but still have this nasty cough. He had not being gaining weight like he should have been at his last appt., so they had us put him on Pediasure. We have been trying that, but switched to Pedialight when he was sick. Since then he has been having awful diapers. They are like what he had before we started him on his enzymes. I will not gross you out with the details, but they are not normal. He hasn't been eating or drinking well either. He woke up yesterday with a dry diaper and usually it is soaked! My mom and dad had him all day yesterday and he would not eat anything but a few pieces of apple. He also wouldn't drink anything but a half a cup of pedialight all day. So, by last night I was a bit concerned. He had not had a wet diaper all day. I ended up calling our Dr. from Children's Mercy and he said try to get him to drink something and if he hadn't eat, drank or had a wet diaper by Sun. morning they wanted him to come on up and they would start and IV. The other thing that worried him was that everytime he would try to eat something he would kind choke. So he wanted me to watch that and if it keeps going on he wants to check that out to. I had went to several different restraunts trying to get him to pick out something to eat, but he wanted nothing. He woke up at 3 am and he had went poop. Thank GOD!!! I got him to eat a popsicle and drink a whole cup of pediasure. He woke up again this morning and had another poop diaper. We stayed home this morning from Church and I have gotten him to eat a couple bites of stuff he wanted. I am also pushing the liquids. I am just worried because I can tell something is not right with him. I just wish everything would go away! I don't know if I need to adjust his enzymes, take him off milk, or if it is just a stomach thing. It's is all just trial and error. Anways, sorry to vent to you all! We are soo excited about the Great Strides Walk. We already have about 20 people signed up online and my sis in law Lauren has gotten about 27 girls from the Nursing dept. at UMKC signed up. She said that was only the seniors and she was still going to recruit the sophmores and juniors. We should have a huge group walking with us :)

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comments:

Jenn..Hi! Thank you for the sweet comment you left on my blog! I would love to follow your blog too! I started blogging at the beginning of the year and I LOVE it! I have met some really great people. It is hard being a mom to a cf'er and it's wonderful to be able to connect with people who understand. I look forward to getting to know you better!!

Your little boy is so cute! I hope he get's better very soon. Follow your instincts, Jenn. Just how we know our own bodies, we usually know when something is wrong with our children. If you still feel like something isn't right, call Parker's dr. office tomorrow.

Welcome Jenn to the CF Blogger community! I look forward to keeping in touch with your blog and about Parker! I know you will make lots of blogger friends! I'm going to add your blog to my blog roll, as well, so it's easier to follow you. Hope that's ok! :)

Hi, Jenn! Welcome to our little world. My daughter, Reilly has CF, too. Feel free to check out my blog. I follow a lot of the wonderful ladies above, and you can learn so much. The support is wonderful, especially when we are needing some advice. Glad you decided to come over to blogger.

Welcome Jenn! I hope Parker is doing better. My son, Seamus also has lots of GI issues that sound similar to Parker and had many, many tests done before they got a handle on it. My advice is to keep asking questions and don't be afraid to get second opinions, if necessary. Good luck and feel free to email me if I can help you with anything.

I'm happy to read that parker was able to eat something please. Don't worry about the poop details. It's just apart of CF and were all use way to use to it. My husband Josh always makes me look when thinks his was "normal" Gross hu? I hope parker keeps improving!!!

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About Me

I am a SAHM to Bailey who is my beautiful 5 year old and Parker who is a 2 yr old little boy who is full of life! For the first year of his life he had awful GI problems and lung issues. We had him tested for alergies, he was diagnosed with Asthma, and we were in and out of the Pediatricians office. After a long struggle to get him tested for for CF, we switched Dr.'s. We were referred to Childrens Mercy were he was diagnosed with CF in Feb, 2008. It has been a year now and his treatments and medicine have worked wonders. He is so far pretty healthy. He loves trucks, cars, trains, balls and to play outside :) My goal is to spread awareness for this awful disease and to help find a cure!