This information sheet is about autosomal recessive polycystic kidney disease (ARPKD). It’s for expectant parents who have been told that their unborn child has or may have ARPKD; parents of babies and children with ARPKD; and ARPKD carriers who are planning a family. It explains the causes of ARPKD, how it’s diagnosed, its symptoms, treatment, and how the disease might progress.

We are sorry if you’re upset by any of the information in this guide. ARPKD is often severe, and diagnosis is a worrying time for parents. Please call our helpline on 0300 111 1234 if you would like to talk to someone directly about ARPKD.

PKD Charity is a Member of

The Polycystic Kidney Disease Charity is a registered charity in England and Wales (1160970) and Scotland (SC047730).A company limited by guarantee.Registered company in England and Wales (9486245) | Registered address: 49-51 East Road, London, N1 6AH.

This website uses cookies to manage authentication, navigation, and other functions. By using our website, you agree that we can place these types of cookies on your device.