Saturday, January 25, 2014

Hope for Dante' Herrera

"Dante' Herrera is a wonderful 11 year old boy who has been battling an unknown disease throughout his life... Dante' and his family have traveled from hospital to hospital since he was about 1 year old and after many years of searching, he was recently diagnosed with a rare terminal genetic disease called neuronal ceroid lipofuscinosis (often, though incorrect, given an umbrella term of batten disease). although there are many known forms of ncl with gene explanations, the form that Dante' suffers from is even more rare, in that, to date, there is no gene explanation.

Dante', his mother Marlo, and his network of family, friends and a wonderful network of healthcare professionals are dedicated and ready to fight this disease with all their might, but will need some help. please give what you can as all donations are greatly appreciated... all proceeds will go towards Dante's expenses, treatments, hospital stays and travel to various out-of-network facilities. your generosity is very much appreciated.