Really well
Ds abdominal pain went from a 7-8 most days with up to 10 BMs per day plus other symptoms
To avg belly pain 1-2 and 1-2 bm per day
That said we only are trailing one food at a time to figure out which foods were triggering
Some are clear cut ( chicken ) while others go in the maybe pile to trial later
So he is actually closer to 80/20
Typically he drinks 6 peptamen jr with prebio a day
Plus food ( watermelon for lunch ....and eggsotatoes:tomatoes for dinner )
Ds is well past the 6 week mark closer to the 12 week mark ( end of this week )

It's very hard on Ds emotionally since he is older and there isn't an end pint for this diet for him but physically he feels a lot better .
His labs improved as well .

Just be aware it doesn't permit any packaged /canned or frozen foods
Everything is in whole form and fresh .

He is moving on to the second list
He had a lot infections ( nothing serious ) but lots of abx and still on pred so trailing things got more complicated.

Trying to wean pred ( arthritis stuff)

As far as form of food nutritionally its is the same but not how it effects the gut.
Oxidation is one of the many things that are reduced with this diet .
Juices ( even fresh squeezed have more oxidation than fresh fruit )
Same with frozen

Another thing we see his Gi Monday and are asking to combine the diet with
The ibd-aid diet http://www.ncbi.nlm.nih.gov/pmc/arti...report=classic
Since the exclusive crohns diet gives very little guidance after the first 13 food list
Other than just all fruits/veggies/nuts plus limited whole wheat bread .

The ibd-anti inflammtory diet has phases for each of the veggies
And allows some hard cheeses that are lactose free but doesn't allow any wheat
So will see what the Gi says

Gi visit went well
Gi is happy
Continue adding to the diet one food at a time then eventually reduce formula
Permitted to use ibd-aid list as well since I am only adding one food at a time
Basically building a new diet for life not just 6 weeks

Mr chicken, is it by symptom presentation with a goal of symptom reduction? I remember he was experiencing stomach pain so was this diet implemented to address symptoms directly or did blood work, testing show inflammation the GI wanted to address with this diet. I'm assuming it would be much less effective if there are no outward symptoms to foods or inflammatory markers aren't indicators of inflammation?

Ds is complicated
Bloodwork most often shows up as normal as do scopes( only microscopic) imaging etc...

Diet was tried based on symptoms
Severe abdominal pain/cramping / rectal pain /prolapse /nausea/vomiting /fatigue that started last thanksgiving and kept getting worse
Multiple ER visits and two admits .

Diet reduce BMs from 10-15 per day to 1-2
Abdominal pain from 7-8 down to a 1-2

Each food it is fairly obvious within 4 -5 hours of eating symptoms markedly increase
Remove the food and he is back to baseline within a day or two
I am adding foods from the lists to have a higher success rate

Ds has had Gi issues since birth and has had a restrictive diet of some sort until recently ( past year or so )
The difference is amazing

That's amazing! I hope the diet continues to help! It doesn't seem to be something we could try as C has never reacted to foods. I mean before dx, anything he ate bothered him but siince remicade and other meds were started he's not had any reactions to foods or anyrsymptoms really.

His diet has been fairly clean anyway except when the doc was trying to get weight gain and wanted him to stuff himself with high calorie foods plus EN. the list isn't far off from what he eats excluding tomatoes or melons, he doesn't like the texture plus he probably has steak once a week which may be more than the diet calls for.

Honestly before we actually started this diet
I would had said nothing symptom wise was relayed to food
Until I took it all away for over two weeks nothing but formula
And systematically added one food at a time back in

The original diet was designed to be able to eat all of the 13 plus foods at once as well as formula but given Ds allergy history
It seemed easier to try them one at a time to see if any particular foods were irritating his Gi tract .

I'm going to show him this study and see what he thinks but C doesn't have symptoms at all. He's not had stomach pain and he has 1-2bms a a day that are normal consistancy. There would be no way to determine which foods to add or eliminate but maybe we just do the whole 13 and see what next scope shows.

We had this problem when we tried elimination diet too. C just got frustrated that I was constantly asking are you sure there's no difference or that I wanted to wait to add in the next food to be certain. This asymptomatic stuff is so complicated when you artrwanting to try different things since he can't see/feel a difference yet the inflammation just keeps on keeping on.

Mr chicken--will you try to reintroduce foods later if the first introduction causes problems?

The food issue is still one of the hardest for me. We know of many foods that cause problems for E when she is in a flare, but she seems to be fine with them now. I worry, like some of the other posters on this thread, that some of those foods may be causing inflammation, but without symptoms it's hard to know.

Most of the diets that people use with Crohn's (such as the SCD and IBD-AID) seem to have phases, where the later phases included foods that are not good when you're flaring, but can be eaten without problems with you're not in a flare. It makes sense to me that this might be the case, but it makes it hard to figure out what foods are safe, and when.

Any foods that "fail" the first time
Are pulled
After at least a week reintroduced in a lower fat form
If the reaction is the same as the first time it's put on the "fail list"
If the reaction is questionable it's put on a maybe list and tried a third time
Only the one new food changes each day
The baseline ok foods ( variants of them ) are everyday until a full diet or not trailing a new food
Ds has a very strong allergic history including foods
So for him it's not an ibd diet sorta thing but a possible intolerance /Gi allergy to that food sorta thing
The crohns exclusive diet doesn't permit fillers processed food starches etc.,,
So not a phase sorta thing

On paper he does not have any signs of active disease at all
But still had a lot of symptoms
Theory was something was irritating his Gi tract ( crohns allergy etc - no one is sure )
So as a last ditch effort Gi suggested the new diet since it calms the gut and induces remission for difficult crohns cases
But since Ds is so sensitive on so many fronts Gi and I decided to just add one food at a time to build Ds a new diet as opposed to doing this for a few weeks
And now that the Gi has seen how well it's working
He wants him to really stay on it
I can't say if it crohns that caused the issues
Irritating Gi intolerance similar to allergy or something else
That said the Gi was very specific that it needed to be a diet that has been proven to induce remission for crohns and not just a free of xyz diet .

No link
Just originally restrictions but you are permitted additionally
All fruits/veggies/nuts plus 200g of whole wheat bread

That's it
No dairy no other meat ( chicken/fish any day plus red lean meat once a week)
No canned /frozen food no emulsifiers no yeast -all fresh
No additives and no packaged food
So basically everything from scratch

If you are going to IBD-AID now are you including the yogurt/kefir/lactose free cheese or omitting that altogether?

We're starting CDED tomorrow for 6 weeks. She is willing to do it after a discussion. Not sure where to go from there but I hope to see some results. Dr. Baldassano talked about testing this diet with 80-90% EN. (not our GI but I watched a presentation).

We are supposed to be on 70/30 EN and I am going to try to move her up to 80% while we try this. Did you stay at 80/20 for the 6 weeks? Did you move percentage down at any point?

She is up to weekly Humira and I really want something to kick in. Humira isn't reactivating yet (it's only been a week on expanded dose, I know). Anyway -NOT to derail the thread. Just curious about more details on your little rooster.

One last thing
Having him pick the recipes we try has gone a long way to keeping him happy
We look at food network online to figure out what looks good to him
Then trial the ingredients for the week one at a time
With the actual recipe at the end

He drinks peptamen jr (6-7) a days and later once we get a full diet will have 3 a day which has calcium . He was on 2-3 a day for years.

As far as mixing diet
Each diet has its reason for adding or pulling certain foods and the interactions between those foods
So adding extra stuff could offset the gut balance that was achieved on each diet alone.
Since ibd-aid doesn't allow any wheat at all and different fats and oils - no restriction on yeast as far as I know
Than cded which limits fats specifically to two oils and limited bread
The funny thing is Ds was craving cheese but once I gave him a sprinkle of the allowed cheese on the ibd aid -he lost his taste for it- it has been three months without any dairy except the peptamen jr
The guacamole on the other hand he adored
His taste buds are changing and certain foods are now having different tastes
Which is a good thing
Ds has always cooked in the kitchen since age 4
Food allergies has made that a necessity
He can baked bread /bagels etc from scratch

For sure your taste buds change and it could be as fast as one week for some.

On the calcium note... Many vegetarians and vegans get plenty of calcium. I don't have it handy but our RD gave me a paper that said animal products interfere with the absorption of calcium so if you take those out of the diet the theory is you need less. We still aim for the 1200 for o as she has osteopenia. There are many veggies with excellent calcium and when you can eat them lots of seeds also. We grind d up chia in smoothies daily. The seeds are also a good source of protein and some are a good source of omega 3's!