Friday, July 9, 2010

Busy as always!

I continue to work a bazillion hours away from home as well as at home! I don't know when I get any rest at all. But, it must be done.

I'm changing my hours when Baylee starts Kindergarten in a couple of weeks. I'm going to work Friday/Saturday night, bartend Sunday during the day and wait tables Monday night. That way I will be off Tue, Wed, Thurs and will get to help her with her homework and be home more during the week.

Other than that we've kept pretty busy this Summer. Taking the girls to the movies next week! Hopefully Blair will do well.... this will be her first movie since she was a tiny baby! :)

Speaking of Blair.... she is FULLY potty trained now! Pretty much every night she wakes up dry in the mornings and rarely has accidents! I'm SO proud of her and how fast this all happened! She was MORE than ready for it! And, it's exciting that diapers are no longer part of my weekly grocery list!

My parents are about half-way through their remodel/addition to their house. It looks great and really makes me want to put some hardwood flooring all through my house! I love it!

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Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!