Suzi's Ice Box Art!

Saturday, April 30, 2016

Planning, Prepping, Packing and Postponing a trip of a lifetime and things I learned along the way.

Zip-A-Dee-Doo-Dah- What seemed to be such a nightmare last fall has turned into much more of a pleasure in 2016. We have time to plan, to make our reservations for the things we really want to see and do like the Grand Floridian Tea and Mickey's Very Merry Christmas Party and actually go to them on the day and time of our choosing. There are a few more venues open this year that we may want to do and all around more freedom for us to organize ourselves.

Grand Floridian Tea Room.

Both of us are eating healthier and exercising more. I am determined to strengthen my legs so I don't have to consider a walker.

The best part of the whole "adventure" was I was there for her when she needed me the most. I was able to hold her hand and tell her we would get through this when she was the most scared.

When we get to Disney this year, the trip will mean a lot more to us because of what we went through last year and it will be a trip of a lifetime for us.

Thank you to all who visited my blog during the 2016 challenge, especially Jo-Jo who hung out for the whole story. Hope to see you in next year's challenge.

Friday, April 29, 2016

Planning, Prepping, Packing and Postponing a trip of a lifetime and things I learned along the way.

Yes: I am happy to say that Alison is recovered. I stayed for about a week after she came home from the hospital. I watched her sleep on the couch a lot and gave her her meds. Then her grown kids started coming home for the Holidays so I took my two big red suitcases (the Disney one I never even opened) and went on home. She struggled through the holidays with a houseful of family but she left most things to her grown children to do and slept.

In January, when she saw her regular doctor for a followup, he told her that she was very lucky that it turned out to be a viral infection, which is less serious than the bacterial type. The virus takes several months to clear out and although the medicines she took in the beginning were helpful, he said the best thing for her to do was let her body heal itself by resting and sleeping any time she felt tired. He said our bodies have these viruses all the time and when our immune systems get weakened they attack. He said she probably got this from having the bad cold she caught from her grandson.

It took several months for the headache to disappear, for her ears to clear and for the overwhelming tiredness to pass. I was there in March for a visit and she was probably 85% back up to speed.

Thursday, April 28, 2016

Planning, Prepping, Packing and Postponing a trip of a lifetime and things I learned along the way.

Xtraneous Circumstances and Xtra Vacation- Thank heaven for trip insurance. We managed to reschedule the Disney trip for December 2016 with the help of the travel agent. As sick as she was, Alison managed to cancel all the reservations for the activities we had planned. A nice young man on the phone who wasn't even in the right department at Disney looked up her number and worked with her as soon as she said she was in the hospital with meningitis. That was such a blessing.

As far as the airline trip was concerned, we had to postpone the reservation but they only let us postpone to the day we ordered the flight. So, we get to travel somewhere by plane until the middle of October on those tickets and we have to get new tickets for Disney for the end of the year. That will ultimately give us an extra vacation together (not switchable). We haven't decided where we will go.

Wednesday, April 27, 2016

Planning, Prepping, Packing and Postponing a trip of a lifetime and things I learned along the way.

What, Where, When, Why and sometimes Who- Questions, questions and never any answers.

Alison was admitted very late that Tuesday night, with the help of her husband (the admitting people said they had no info from her doctor). I stayed back at her house to unpack my stay at her house suitcase because I realized I was going to be there for a while. I would be driving back and forth to keep her company and translate the hospitalese for her (I am a former RN and have personally been in hospitals more times for operations and procedures than you can shake a thermometer at).

Alison ended up staying there until Saturday. They kept her in Quarantine, with everyone entering her room gowned, masked and gloved, until late Thursday when the Infectious Control doctor came in to announce that "It is Viral", and took out her iv with the meds in case she was bacterial and got rid of the masks. He acted as if he had saved her single-handedly. He came back several times during the next days to confirm as other test results came back that "it's Viral." That has become a catch phrase for us.

Although everyone was wonderful during her stay, no one explained about what the illness really was. I had my daughter and husband google information about it for us because I was vague on the details. It is an infection in the covering of the brain- the meninges. The infection causes swelling and puts pressure on the brain and the nerves serving the brain. That is where the intense headache and confusion was originating. It also affected her ears and eyes, thus the loss of hearing and sensitivity to bright lights.

She was given meds to reduce the swelling and some pain meds to dull the headache and some to help her sleep and some other stuff- well you get the picture. She found no matter how hard you try to sleep in the hospital there is always someone there in a mask to scare the heck out of you by waking you to see if you need anything or give you a pill.

I found despite being a less than eager driver, I could make the trip to and from (in the dark- oh my) the hospital with ease. I spent hours keeping up with family and friends who were stunned to hear Alison had Meningitis, "where would she have gotten that?" I remembered to ask all the questions that Alison and I had thought of and translate the garbled answers back to her. We did find out near the end of her stay that this hospital almost never saw cases of Meningitis so Alison was a rarity.

Best of all, I had found a Tim Horton's Coffee Shop (like Starbucks but way better) at the entrance of the hospital so I had coffee and food at hand for both of us.Now if there had been a Cold Stone Creamery, I would have considered moving in.

Tuesday, April 26, 2016

Planning, Prepping, Packing and Postponing a trip of a lifetime and things I learned along the way.

Due to unforeseen technical difficulties, U is combined with V today; the unforeseen technicalities being a gremlin who took my completed and published U article off into the ether yesterday never to be seen again.

Unbelievable- Continuing our story... bright and early Tuesday morning , I drive Alison back to the medical complex that is close to her home. We have managed to get an appointment with a neurologist who will see us right away. She listens to Alison's longer and longer story- when she thinks she got the cold, the meds she's taken, the headache which is now the worst she has ever had, the ER doctor (no help there) the confusion (I am really stressing the confusion). The doctor walks across the room, feels Alison's neck, asks her to move her neck and says "I am sending you to the hospital, I want you to have a lumbar puncture; it will give us a definitive answer. I think you have Meningitis."

We mention that we are supposed to leave for Disney with the vague hope we can still go and the doctor immediately squashes that hope.

"You are a very sick woman, with a very compromised immune system right now- you can't be thinking you are going to get on a plane and possibly be infected by other passengers or have them infect you. And Disney- that has be be the most germ filled place in the world. You'll get there and be so sick you'll be in bed, and what- your sister will have to show herself around? You are in no shape to go anywhere.

Viral or Bacterial- To make the story move along for you, my faithful reader, I will skip the fact that Alison has been lucky in her life and has had little contact with the ugly side of medical care and hospitals. I will overlook that she is very scared to have anyone mess with her spine. I won't talk about her resources that are very low and she needs to rest and she is so easily brought to tears now.

We drive 30 minutes out of our way (there are other hospitals closer to home but this is the one the doctor is associated with), have the test done (which is very painful for her) and meet in the lobby with Tony, her husband. Realizing how sick she is, he has called the travel agent to find out what we can do about the trip. We can postpone into 2016.

Alison is sobbing, she is so afraid and Disney gave her something to hold on to. Ultimately, we decide to postpone the trip of a lifetime and concentrate on getting her better (one of us could see this coming when she stepped off the train Sunday night, to another of us it is a big surprise. She just doesn't realize how sick she is).

Around 4 o'clock, I drive her home on a major highway and two things happen simultaneously 5 minutes from home, we run out of gas ( a story for another day) and we get a call from the neurologist.

She says she is surprised the hospital released Alison. She says since we are so close to home we should go there, get Alison some dinner and then Alison should pack a bag and go back up to the hospital because she is being admitted.

"You have Meningitis... now we have to determine whether it is Viral- serious but treatable or Bacterial- contagious and possible deadly and harder to treat."

Sunday, April 24, 2016

Planning, Prepping, Packing and Postponing a trip of a lifetime and things I learned along the way.

To the ER and Beyond: The next two days are mostly a blurry nightmare to us both. I amdriving her car (because she can't) and Alison is navigating with some confusion while she talks a million miles an hour. "Why is this happening, what should I do, why hasn't the medicine helped, why won't the pain stop, Turn right at this corner, now I can't hear- my ears are clogged, the sun hurts my eyes- OH, NO, I meant turn left at the corner."

Dr. Office Monday mid A.M.- Alison's doctor hears her symptoms and that Alison has gotten worse with the medicine prescribed and that she now has "the worst headache of her life" (with me trying to get her to realize that Alison is a sharp cookie and right now she is having trouble remembering her name). Alison mentions that she looked on line and her symptoms are similar to meningitis.The doctor looks worried, stays far away from Alison, leaves to consult with some else, then says she is sending us to the ER for tests and has called ahead so they know Alison's information. (You know we are leaving for Disney on Wednesday morning.)

ER around noon- Everyone here asks the same questions that the original doctor did (this place is just down the hall). They have none of Alison's information. Alison explains how this all started 2 weeks or so with a cold that she might have caught from her grandson.They do a cat scan of her head, they draw blood, they give her some meds, they give her some fluids and we wait and wait. Every once in a while, the ER doctor, english is a second language, comes in to assure us that her tests are being evaluated. He also repeatedly says she does not have meningitis, he himself has seen meningitis and Alison wouldn't be able to move her head, her neck would be very stiff. When we remind him again that we are leaving for Disney he thinks that Alison should see a neurologist before we go. He prescribes some new meds and sends us home around dinnertime.

Home Monday night: Everything takes longer because Alison can hardly move. We have to call and cancel our babysitting duties for tomorrow. She takes a dose of her new medicine and gets sick to her tummy. She takes a different new med and now I can hardly get her off the couch. My concern from Sunday night has turned into real worry now. This is my baby sister whom I love like my own children.

Friday, April 22, 2016

Planning, Prepping, Packing and Postponing a trip of a lifetime and things I learned along the way.

So Sick:Alison, who sounded awful on the phone despite several days of antibiotics, is scheduled to pick me up that Sunday night at the station. The train is late, she is late. I stand outside in the almost dark parking lot, knowing I am safe because I have my handy, dandy umbrella in my hand. We often joked that I could valiantly fight off any assailant with my umbrella- stemming back to a time when as a young mother I had protected my kids from an attacking dog by knocking him around with a loaf of bread until he ran off (I was fierce).

The little Sebring convertible I've been watching for drives up and parks. I hardly recognize her when Alison somewhat stumbles out of the car. She is pale and weak looking and mumbling about a trolly car that she almost really hit.She drives home but I realize later she was in no condition to be behind the wheel.

Long story short, her head and neck ache, she is running a fever and she is still planning to go to Disney but she has no idea what the next step is. Over dinner, (with some help from Tony, her husband) I convince her that before we do anything else, we go to the Doctor tomorrow, Monday. Obviously, the medicine is not working. We'll get some new medicine and she'll feel much better. I'll help pack and we will be all set.

She is confused in speech and it doesn't appear she has been able to do much the last few days.I am really worried about her.