AMOSS Vasa Previa Study

Currently, the diagnosis rate of VP is well below 100% and data on incidence is extremely unreliable. As a result, optimal, standardised
diagnosis strategies and treatment approaches are lacking, with clinical decisions based on a small retrospective case studies and single
case reports of individual women.

To address the lack of information about how women in Australia who experience vasa praevia are managed or how they
experience maternity care, the Australasian Maternity Outcomes Surveillance System (AMOSS, www.amoss.com.au) will carry out a national
study, generously funded by the International Vasa Praevia Foundation (IVPF). The research investigators are: Professor Elizabeth Sullivan (CI), Dr Rob Cincotta, Dr Greg Duncombe, Dr Yinka Oyelese and Professor Caroline Homer. Nasrin Javid is the Study Coordinator.

AMOSS was established in 2008 and is a bi-national surveillance mechanism and national research system designed to study a variety
of rare severe conditions in pregnancy, childbirth and the six weeks after birth. AMOSS is based in the Perinatal & Reproductive
Epidemiology Research Unit (PRERU), University of NSW and is funded by the NHMRC. Clinicians, health professionals and researchers
in almost 300 maternity units across Australia and New Zealand contribute monthly surveillance and research data to the AMOSS data
collection, which covers >96% of births in Australia and all New Zealand, and has a robust and active research community supporting
the project.

Information and knowledge generated from this project will provide a national evidence base, and importantly, information for
consumers as well as guidance for obstetricians, midwives, sonographers and other allied health professionals about the diagnosis,
management and outcomes of vasa praevia to facilitate the provision of optimal maternal and fetal care.