The Joys of having CF

Sunday, February 5, 2012

Day 22 & Health Update

Day 22-I didn't like the topic of day 22 so I'm going to skip it, but instead give an update on things in my world and my health. First, I want to say that on Friday(Feb 3) I FINALLY got my iphone 4s after waiting since May. I got the White Iphone 4s---and let's just say it's the most amazing phone ever! On Saturday(Feb 4) i spent the day with my mom and two sisters, we haven't done that in a while and it was one of the best days ever. I miss that we must do it again Soon!! Now onto my health. Well remember how a couple of weeks ago I had a great doctors appointment and my FEV1(breathing test) i blew a 97%, well as I write this, i'm writing it on vest with very tight, hurting lungs, taking 3 antibiotics, and planning my "future" hospital stay-Let me explain. I haven't been feeling good for a while(lungs) and have been putting it off because we've had plans that i didn't want to miss so i haven't told anybody-not smart i know. So I do tobi every other 28 days. I am currently on it. I take Azythromicin 3 days a week.Well I started not feeling good at all. Wore out, tired, & yes the cough. I haven't been sleeping-laying awake till 5 a.m. is no fun at.all. So mom called the dr. and they sent in for perscription Bactrum. I've been on it now 4 days and still no difference at.all. So mom's going to call tomorrow and see what plan B is. I don't want to expierment with anymore meds. I am anticipating a hospital stay this week. I know sad right? But it's okay because I know that it's the easiest way for me to get better, and IV meds work amazing. So that's what is going on in my world of health updates. I will keep you all posted on what is decided, but don't be surprised if one of my next posts is from Hotel U of M Amplatz Childrens Hospital :) I mean hey i like nice "expensive" vacations, why not just make it to a hospital--hey they have room service :) haha. Have a good day! ~God Bless

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About Me

My name is Paige. I have Cystic Fibrosis. I am a fun loving, small town girl with big dreams...trying to live my life to the fullest. I am a Christian. My family is my priority. I was homeschooled since my freshman year of high school and graduated a year earlier at age 17-Senior 2012. I love anywhere with an ocean. My favorite color is Pink of course. I have a crazy love for food. I love to travel. I want to see the world. I enjoy spending time with my family & friends. In March 2011 I went on my Make~A~Wish trip to the most beautiful island in the world, Bora Bora. I have written a book called, Growing up with Cystic Fibrosis the first 13 years. It's about living with Cystic Fibrosis (an incurable illness). I wrote the book to help people. I have recently started to get involved with public speaking. I believe that my purpose in life is to help people, and to make a difference. I believe that God put me on this earth for a reason, and i'm not going to let him down.
Social Media sights: Instagram,Twitter, Snapchat & Poshmark: paigecf94

A Powerful Statement

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer