Tackling Endometriosis One Blog At A Time

Share your Story : Kyla

Kyla is 34-years-old. Nine weeks ago she had a total hysterectomy and is struggling with a potential diagnosis of Endometriosis and needs our help…

Kyla’s Journey: Hello everyone .. I recently had a total Da Vinci hysterectomy with bilateral tube removal due to several years of horrible pain with my monthly cycles and irregular bleeding with painful intercourse. I have had a very rough recovery, suffering 2 large hematomas and am still slowly recovering at 9 weeks post op. I have suspected for a long time that I had/have endo. My Dr. Has not discussed her findings during my hysto. ..she has only told me that she removed extensive scar tissue.

Because of the hematomas, I have had several CT scans since surgery to monitor my condition. At my last scan they found a nodule on my lung which I have learned can be a symptom of thoracic endo. While discussing this with my mother, she told me that my Dr. told her after my surgery that she had removed old endometrial tissue.

I just feel like there are things going on that have not been completely “fixed” by the surgery. I have suspected endo for many years and actually felt foolish after my doctor didn’t mention it at all…but now I’m finding that she did mention it to my mother so I just don’t know what to think. And as for the lung nodule, I have not had a confirmation as to what it is, I go for a re-check to see if it’s still there on the 21st…. But I am suspicious of the seemingly “mystery endo” … I don’t know if I should just ask my Dr. About it or wait for her to possibly mention it?

I don’t know how to proceed at this point. I still feel like I am experiencing endo symptoms and am definitely concerned about my lung.

**

Kyla needs our help. She wants to know if she needs to push her doctor for further information, if she should discuss the nodule on her lung, and her symptoms. If you wish to contact Kyla, please email her at kilyien@gmail.com. Or if you leave a comment below, I’ll make sure she receives it.

I want to send a special Thank You out to Kyla for being brave enough to share her personal story with us today. You are a beautiful, brave, and strong woman.

And if YOU would like to share your story, you can do so by clicking here. The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Post navigation

One thought on “Share your Story : Kyla”

Hi Kyla-
What an ordeal you have been through! I’m sorry.
I am kind of surprised that your doctor did not say more to you after your surgery! I had a laparoscopy last year and am scheduled to have an open surgery this coming Tuesday to remove a large endometrioma that came back. My surgeon last year was very forthcoming with her findings (my endo was “officially” diagnosed after last year’s surgery) and the doctors I’m seeing now are great too, but of course now I already have the diagnosis. Maybe yours is just assuming (wrongfully) that you know you have endo??
At any rate, definitely speak up and keep pushing for answers. I would absolutely ask the doctor directly and not wait any longer. It’s your body, your health. I’ve had my share of incompetent, awful doctors! Don’t get discouraged. There are good ones who can help but the process can be frustrating to say the least. I will keep you in my thoughts and hope you get some answers soon!! Take care ❤️