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hi,
I was liberated balloon angio in December, IJVs and azygos stenosed,

i was wondering if Hyperbaric Oxygen Therapy would be beneficial or harmful for a CCSVI patient,

when i have ;less oxygen my legs always become weaker, e.g. in nightclubs when smoking was allowed, standing under air conditioning unit would quickly give me strength in my legs, also when talking constantly for longer than a few minutes with few breathers weakens my legs
so clearly lack of oxygen affects my mobility

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Hi, I did hyperbaric therapy for two months, 8 months prior to having the CCSVI procedure. It helped some symptoms abate for up to 4 months, and others for a few minutes. The many symptoms that improved, convinced me that CCSVI was for real when I first heard about it. I knew about how much I would improve, at least, short term.

When I did the therapy, my physical therapist who does deep tissue work, said that my lungs needed help to fully function because of the pressure they had been under during the therapy. Because of that, I have been reluctant to do any more after having angioplasty for CCSVI because I was afraid the pressure on my veins might cause them to restenose.

I did 5 treatments a week for two months. It really helped short-term; but, my son-in-law's step-mother did it over 15 years ago and went into remission. She has never had any symptoms since. Don't know why that worked that way for her.

I did 20 sessions in a month before angioplasty. It seemed to help with energy for me but not with balance or leg spasticity. Angio has so far solved energy and balance. The leg remains an issue, dead neurons, my guess. I would love to try HBOT again, long term to see if the increased O2 would quicken neuro-healing but at $250 per session, not covered by insurance, that's not going ot happen short of winning the lottery.

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