Enter into my world and you will learn first hand what it is like to live day by day with Early Onset Alzheimer's Disease. You will see the anger, fear, humor and tears that keeps my family and I afloat.

Wednesday, January 26, 2005

It has been a very busy last couple of days. I had a follow up appointment with my neurologist on Monday. He gave me a mini-mental exam in the office for insurance purposes he said. I did pretty well. He said that the changes that we are seeing with taste, smell, difficulty (fear) in traffic and getting meds all mixed up again and failing comprehension is all to be expected. He felt that the Namenda has been a great help in the progress that I have made. He raised the Exelon to the maximum dose, that is all there is left to do until maybe someting else comes available in the next couple of years. He said the lexapro is what is causing my weight gain and we will be changing that I when I go back to see my psychiatrist in a couple weeks. That will be a relief to change that. We have a new addition to the family. Peaches is a 11 month old pitbull. She is very playful and is trying to win Daisy over as a play mate. The great news is we were asked by our Chapter to go to Washington and speak to the Public Forum Policy. I have so much I want to say. We need better and quicker diagnosing methods so, so many families don't risk loosing everything they have until they can get a diagnosis, because it is suppose to be an old person's disease. We need to modify programs that are out there for seniors that will also cover those that are diagnosed with Early Onset. We need a support system for our children, there is nothing for them and we need to increase the education to families about Early Onset and remove the misconception that it is an older person's disease. These are topics that we hope to speak about. We are very excited and looking forward to it. I guess that is all for now.
Take care and God Bless!