Monday, December 20, 2010

sledding with the family

Sunday we ended up staying home from church. Laine was getting over an illness and she needed more rest...but by afternoon she wanted to play outside and we went sledding. It was a wonderful family day with some baking ( saltine chocolate toffee....go there for the recipe), and Christmas music, sledding, afternoon 3 mile run, Wii mario cart games, dinner and coffee and snuggling with the family on a cold day. I am so blessed to have a family that makes living so much fun. We are looking forward to the next few days and gatherings, and being thankful for Christs birth.

Books I recommend

Wide Awake

The Last Lecture

Three Cups of Tea

Eat, Pray, Love

If you lived here, I'd know your name

The Bible

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Followers

Sisters

May 2008

The Decker Family

Welcome

Welcome to the beginning of a new adventure... mom, nurse, scrapbooker and tennis player becomes a Blogger. Well recently I have been reading blogs that are interesting to me and I thought why not me too. I hope you enjoy our stories of our life...