Thursday, April 24, 2008

now...I just wait! They plan on just mapping the heart and getting pressures...but, if he shows that his pa's are narrowing...then, they might do a little ballooning while they are in there...

Then, they will keep him intubated and wheel him down the hall for his MRI.

THEN...I will be able to see my little grumpy bug!!!

The hospital DOES have wifi...so, no problems keeping you updated. I don't expect anything out of the ordinary...just getting him off the vent, a little pedialyte in his tummy...and we'll make it home tonight!!!

Try not to go too crazy sitting in the hospital. While you're on the computer, go under Isaac on the left and change his heart cath count to 6. Porr baby. :( I'll call the house later to check on the other two crazy boys!!

Isaac

About Isaac

This is the blog following the adventures of Isaac, our third son. He was born (3/28/07) with Severe Tetralogy of Fallot, Pulmonary Atresia, VSD, Major Aortopulmonary Collaterals, Right Aortic Arch, DiGeorge Syndrome, and Cleft Soft Palate. We appreciate all of the support we have received from our friends and family and welcome you into our hearts and lives as we continue on this journey.

As of Nov. 2009, he's FINALLY sitting up and crawling!! He's such a quiet little man...no babbles yet...but, when he starts talking...I'm sure he'll never stop! He's solely g-tube fed, but has started 1-2 jars of baby food a day (it might take a while...but, he'll learn to LOVE food like his mom and dad!) His favorite thing is "Yo Gabba Gabba"...he's glued to that show ALL DAY, EVERYDAY

To date he's had....1 stomach surgery, 2 open heart surgeries, 6 heart caths, and 1 cleft palate repair (where they also did a little work to his tongue and released some webbing on the inside of his cheeks).

Chris

Chris....was born on September 9, 1994. He was the only child for 8 years before we had Eli (see a pattern here...I need a break between kiddos!). Chris has been home-schooled from 3rd grade-7th grade...and now he's back in public schools in the 10th grade...and I'm proud to say that he's on the A/B honor roll!!! He's currently trying out for the wrestling team and goes to Boy Scouts. He likes video games...and that's about it. Chris is ready to start driving a car, get a job, and go to college (I'm not sure why he wants to grow up so fast!). He has such ambition and loves to share...and THANK GOODNESS he doesn't have a girlfriend yet (my nerves couldn't take it)!!

Elias

Eli...was born on June 13, 2002. He was our baby for 5 years before we had Isaac....so, he's getting use to being the little brother of Chris and the big brother of Isaac. He loves Star Wars, Hilary Duff, and Thomas the Train (not necessarily in that order!). He's currently a 2nd grader and loving school (where he LOVES to read!). He has such a tender heart and feels compassion for everyone...but, also is a tattle-tale much of the time!