My name is Brooklyn. I am six years old and I have Rett Syndrome. My mommy works with a wonderful Rett Syndrome organization called Girl Power 2 Cure. Be sure to check it out www.girlpower2cure.org
I hope you enjoy this blog...it is filled with stories and pictures of our family's life with Rett Syndrome.

Monday, August 4, 2008

Just a quick update....It turns out that Brooklyn has tonsillitisand had dropped another pound which puts us at 21lbs. Ugh. She seems to be doing better as the day goes along and currently is smiling, watching the Wiggles. Which by the way; we have tickets for this Wednesday to see them LIVE in Fort Wayne so I really hope she gets to feeling better!

Poor Brookie, I hope you feel better tonsilitis is no fun and just plain hurts and a ear infection on top of that.Kelly I will look around for some info from when Brent was a baby and was way underweight also, to help fatten her up. Seems like we also saw a dietician. Hopefully you get better soon so we can play on Friday night. Love, Janet, Kirk, Brady and Brent

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