Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Tuesday, August 20, 2013

Today was Abby's first day on first grade, round two. She missed a lot of school last year, so we thought this would be a good year to repeat. My only hesitation was that she absolutely loved her mainstream class last year. They were great with her and I hate that they are moving on without her. I hope that this year's first grade will be just as great. She has been telling me with her computer for the past few weeks that she wants to go to school, so I know she was ready.

She is riding the bus this year for the first time since preschool, so that will be one change. She enjoyed the bus then, so I don't expect it to be a problem. When she has seizures, they do tend to occur in the morning at around the time of pick-up, so I'm hoping that isn't an issue, but we'll just have to wait and see how it goes. This morning the bus was very early. We rushed her out with barely enough time to snap a picture!

I haven't posted in so long! Here's a few photos from the summer.

We went on a trip to Gulf Shores this summer and had a great time. The kids got to spend time with their cousins and aunt that they don't see that often, and their memaw and papaw. It was perfect timing as Abby's fellow Rett sister, Avery, who lives in Gulf Shores, was having a birthday party while we were visiting! I met Avery's mom, Carrie, since shortly after Abby's diagnosis, but it was the first time Avery and Abby met. Girls with Rett seem to have an immediate connection that is so sweet to watch.

Abby enjoyed playing in the water and walking in the surf. The heat didn't seem to bother her for the most part. She only had one seizure on the trip, and that was on one particularly stressful day.

She sleeps a lot on trips. I think its her way of dealing with all the overstimulation that comes with vacationing. She can sleep anywhere!

Abby spend a lot of time early in the summer playing in the water, both in the pool and standing in her gait trainer against a water table.

Summer was fun, but we're all ready for the routine that the school year brings!

Abby

My Story

About Me

I am just like other 8 year old girls in a lot of ways. I love music, playing with my toys, and being with my family and friends. But, unlike most other kids, I have a neurological disorder that makes it difficult for me to communicate with others and use my body the way I want to. I understand what is going on around me, but my ability to interact is limited due to my physical disabilities. Despite the many obstacles I face every day, I am one happy little girl.

Me and my little brother, Logan

“I thought I would have to teach my daughter about the world.It turns out I have to teach the world about my daughter.They see a girl who can not talk.I see a miracle who doesn't need words.” -anonymous