tag:blogger.com,1999:blog-22576999.post2076200917154933493..comments2015-03-31T16:31:43.542-04:00Comments on Learning to Live With ME/CFS: Immune System Abnormalities in ME/CFSSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-22576999.post-12953882286223978312013-05-23T10:57:15.581-04:002013-05-23T10:57:15.581-04:00You rock girlfriend!You rock girlfriend!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-57368444606783606352013-02-19T21:44:43.228-05:002013-02-19T21:44:43.228-05:00Your brain is working much better than mine for yo...Your brain is working much better than mine for you to have an understanding of TH1/TH2. Although dx with fibromyalgia, I also have high antibody titers to EBV, HHV-6, and CMV. I tried Famvir about a year ago and it gave me terrible nausea. I took it for 6 weeks, took a week off, and tried again for another 2 weeks and then quit. Knew it was probably a Herx reaction but just couldn&#39;t take it any longer. Will be talking to my neurologist about getting rid of the viruses and getting her input.Diana S.http://www.nopesticidesmoorpark.comnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-21453198909094921602012-10-18T17:22:34.377-04:002012-10-18T17:22:34.377-04:00Really useful info Thank YouReally useful info Thank YouElainenoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-17702868027952744612012-01-21T05:49:04.128-05:002012-01-21T05:49:04.128-05:00This is really nice information for ME/CFS patient...This is really nice information for ME/CFS patients.Bronchial Asthmahttp://asthma-copd-care.com/asthma.htmlnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-14139283623937256552012-01-14T18:37:09.683-05:002012-01-14T18:37:09.683-05:00Upnorth -
Oh that&#39;s a shame! I know some pe...Upnorth - <br /><br />Oh that&#39;s a shame! I know some people have had good luck with anti-virals. I&#39;ve been on Valtrex or Famvir for several years - it has helped a little but not a lot. My EBV and HHV-6 numbers are positive but not all that high.<br /><br />SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-41504288119897872922012-01-14T11:26:17.743-05:002012-01-14T11:26:17.743-05:00Sue, this particular reaction I had was felt by bo...Sue, this particular reaction I had was felt by both me and my physician to be clearly a &quot;side effect&quot; of the meds that occurs in about 7% of long-term users. That being said, I was probably having some herxing going on as well. Either way, I&#39;m not going on Valtrex again...that was my third shot.<br /><br />However, perhaps we would try an immune modulator like Imunovir, I&#39;ll see what my specialist has to say about it next time I see her.upnorthhttp://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-10789623711557224512012-01-13T08:27:11.697-05:002012-01-13T08:27:11.697-05:00David -
Yes, that kind of reaction in a healthy p...David - <br />Yes, that kind of reaction in a healthy person is fairly common, too. It&#39;s the same mechanism - the immune system is stimulated by the vaccine to create antibodies, which sometimes results in some mild flu-like symptoms (not from the vaccine itself but from your body&#39;s response to it). Of course, it;s typically mild and short-lived in a healthy person. I got a flu shot last year that triggered a month-long crash!<br /><br />SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-42484404322205905942012-01-13T01:18:39.754-05:002012-01-13T01:18:39.754-05:00Thanks for the excellent post Sue. My brother felt...Thanks for the excellent post Sue. My brother felt awful for several days after getting a flu shot recently, and I told him that is a common occurrence for those with CFS. However, I couldn&#39;t explain WHY that happens, so passing along your post to him for more info.Davidhttp://www.blogger.com/profile/10778342601996392913noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-293226915143029282012-01-12T18:15:55.779-05:002012-01-12T18:15:55.779-05:00Upnorth -
Immunovir is an immune system modulato...Upnorth - <br /><br />Immunovir is an immune system modulator, not an anti-viral, so it is entirely different from Valtrex and other anti-virals. Your significant reaction to Valtrex was most likely a herx reaction - a positive sign that the med was killing off viruses in your body.<br /><br />I will try to get to the Immunovir post tomorrow...but it&#39;s a really busy week here, and tomorrow is Craig&#39;s birthday! We&#39;ll see how the day goes...<br /><br />SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-60493736502893412742012-01-12T11:20:38.694-05:002012-01-12T11:20:38.694-05:00I&#39;m curious to see what other immune problems ...I&#39;m curious to see what other immune problems research uncovers over the next while, especially with the success of the team in Norway. M.E. has always been a very &quot;immune&quot; experience for me and I too, believe that at least in my case it&#39;s at the heart of the disease.<br /><br />I&#39;ve tried 3 anti-virals so I&#39;m curious to hear what Imunovir is doing for you to help? I&#39;m cautious to try another one do to some pretty sig. reactions I had with my recent 5 mo course of Valtrex.upnorthhttp://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-7797859560427449942012-01-12T08:07:02.835-05:002012-01-12T08:07:02.835-05:00Thanks, everyone, for the kind words of support! ...Thanks, everyone, for the kind words of support! I&#39;m glad you&#39;re finding this helpful.<br /><br />I should emphasize that the Th1-Th2 imbalance is only a part of the many immune system abnormalities we experience with ME/CFS...but learning about it did help me understand our illness better.<br /><br />SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-87765399536169140742012-01-12T07:35:48.812-05:002012-01-12T07:35:48.812-05:00thanks for the info in the blog which i think is s...thanks for the info in the blog which i think is similar to the views of Dr. Myhill in the UK and thanks again for your emails PeterAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-76031156111884526172012-01-11T23:19:57.250-05:002012-01-11T23:19:57.250-05:00Sue
thanks for a very imformative post.
the TH rea...Sue<br />thanks for a very imformative post.<br />the TH reaction makes sense to me. i have been spending 8 years reducing the effects of mercury poisoning(dental amalgams).i never get sick but get bacterial side effects all the time. I am presently doing a 28 day course of infused ABX to try to get rid of a leaking elbow bursa sac.alcanhttp://www.blogger.com/profile/14436556873775742989noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-16430630456258538652012-01-11T22:40:16.408-05:002012-01-11T22:40:16.408-05:00What a great write up Sue! It was so helpful for m...What a great write up Sue! It was so helpful for me to read. I should know but I never understood the immune dysfunction involved.<br /><br />I feel like printing out your post and taking it to my next MD appt.<br /><br />Thank you!me/cfs warriorhttp://www.blogger.com/profile/01299057722862223585noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-3619272444785278222012-01-11T18:57:52.687-05:002012-01-11T18:57:52.687-05:00Thanks, Renee. BTW, the Th2 dominance also explai...Thanks, Renee. BTW, the Th2 dominance also explains why those of us with CFS have such difficulty getting rid of Lyme and other bacterial co-infections - our immune systems don&#39;t fully respond to them.Sue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-3903973508169768702012-01-11T17:53:13.986-05:002012-01-11T17:53:13.986-05:00This is excellent, Sue and helpful even to me, who...This is excellent, Sue and helpful even to me, who has been sick for so long. You are such a storehouse of info. Thank you!Reneehttp://www.blogger.com/profile/07089685282700680525noreply@blogger.com