Discussions By Condition: I cannot get a diagnosis.

6 doctors later, and no diagnosis,please help

Mar. 20,2012,it felt like blisters on tongue, 2 days later, these white milky raised patches formed on sides of tongue..internist said alpthous ulcers and prescribed an anti-viral..didn't work..week late went to 1st ENT, agreed and gave me a dental paste..didn't work, white lines formed all over inside of cheeks,,looked like thrush, but wasn't,little red blisters on tip of tongue and hairy looking stuff all over tongue, patches on sides of tongue got much worse, painful, rubbing on teeth, sometimes looked layered..went to 2nd ENT..found tumor on back of tongue..and ordered an anti-fungus for tongue..biopsy on tumor benign..tongue still bad, still burning a sensation, developed 4 bad canker sores on inside of lip,went to oral surgeon and he couldn't figure out, so sent me to infectious disease spec. who put me on prednisone, ordered tons of blood tests, neg. for HIV, normal tcells, in fact..nothing showed up as a concern, now I was a smoker, but not for 3 weeks now..white patches are still there, and a bit better,seems to come on in episodes but tongue still burns and now I have a new, large red sore on back of other side of tongue..Has anybody ever experienced anything like this? Any suggestions? what to do next? I

2 Replies:

You said you are a smoker (though you're on a break now), but still, if you've been a smoker for a while, a break doesn't mean you still won't suffer consequences. It sounds like you're in the pre-cancer stages for mouth cancer due to the smoking. Check out Leukoplakia. I would advise bringing this possibility up with your doctors to make sure they are checking everything possible, if they haven't already done so. Stop smoking for good and educate those around you so that they won't have to go through what you're going through. Take care of yourself and best of luck for a speedy recovery!http://www.medicinenet.com/leukoplakia/article.htmhttp://www.medicinenet.com/white_tongue/symptoms.htm