my 19 year old son had his right soleus muscle removed due to a large avm with multiple feeds. This was done after he had multiple embolizations to decrease the risk of surgery. His surgery was successful and he is presently undergoing rehab. Has anyone had a similar situation and what have been the long term outcomes.

I'm 22 and had a similar procedure done in December- 60% of my gastroc was removed from my right calf because of a vascular anomaly. Unfortunately I'm not sure of the long term outcomes, but I have been noticing an improvement as times goes on. I have not undergone therapy for it but will probably start soon- I'm currently looking for exercises to help regain strength in my leg and any tips would be great!

Hello, I was the one who wrote about my sons surgery on Nov 25th 2011 on his soleus muscle. It is today May 12th 2012. My son has done very well after his surgery although his scar from mid thigh to achilles tendon is still very visable. He went back to college on Jan 7th and finished the semester a few days ago. He can jog 3-4 miles per hour and walks entirely normally. His goal is to have the other leg muscles take over for his soleus muscle. For those of you who have loved ones who have severe avms there is a very successful procedure that is offered at only a few scattered institutions called embolizations. My son had approx 15 blood vessels treated with this procedure...it was very very intensive and nervewracking however it was VERY successful thank god. He was treated for these procedures at one hospital and transferred to another hospital where he had his 5 hr surgery to remove his soleus muscle..If there is anyone who has had similar experience or who can give me some long term information on future expectations or reoccurence of avms I would appreciate it. If anyone needs more information from me please contact me through this forum. By the way just for thorougness I am a physician.

Just want to leave an update..My son had his entire soleus muscle removed one year ago. He is doing very well/walking and able to run,although cannot run very fast. The surgeon we had did a remarkable job and we are very pleased with the outcome. We don't know what the future will hold. He has had 2 MRIs done this year which were entirely normal. His surgeon was a hand/leg vascular surgeon at NYU medical center in NYC (he does not accept insurances)

Mission Statement:
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.

DISCLAIMER
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.

Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.