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Saturday, March 31, 2012

Kayli had a Make a Wish in FL this March! She had many firsts, including first horse ride, first time on an amusement park ride, first RV ride across the country, first time in the ocean, first time in a parade, and first time at the World's Largest Aquarium! She went to Universal Studios, Magic Kingdom (Disney World), Sea World, Jekyll Island in GA, and many other fun places! Her favorite parts of the trip was watching the fish at the Georgia Aquarium, sitting in the ocean on Jekyll Island, and meeting her Trisomy Friends and being in a parade with them at Give Kids the World! This is the video of the parade. Other pictures to come! http://www.youtube.com/watch?v=o-RSyGFvHOw&feature=youtu.be

Kayli's Story

Kayli was born with Trisomy 18, otherwise known as Edwards Syndrome. Kayli has been granted 8 miracles of life! The miracles include surviving: Full Trisomy 18, 32 minutes of anoxia, 7 weeks of Endocarditis and Sepsis without antibiotics, a perforated bowel, a surgically misplaced Gtube for 3 weeks, a pinhole sized airway for 3 weeks (resulted in a tracheostomy), a heart med overdose (10X the amount of Clonidine), a Potassium level of 8.2 (range is 3.5-5).
Kayli has 3 older brothers, each with their own, rare disabilities.
Claim'er: Although Kayli's pictures, videos, and information are public, it shall never be used against her. It is not permitted to use Kayli's information, videos, nor pictures, for sale or profit in any way. Kayli's Krusade is to openly share hope, knowledge, resources, acceptance, faith, and to spread God's testimony of Love. You are welcome to share her story with others, as long as the intent is for her purposes, and done with respect for Kayli, our child of God. ♥