RARE Support

tricia dennis

Ophelia The Dreamer and amazing and talented mom is raising awareness for disorders including Lissencephaly. We reached out to her and asked if she could put something together for our RARE families (who many of us call unicorns) This design was...

https://m.facebook.com/story.php?story_fbid=1521645984550455&id=100001152049439 For those coming forward with stories like these we salute you. We understand the hard decisions many families have to make when choosing a quality care life for...

Are you R.A.R.E? sport some awareness with these tees that show your support of RARE. white available Sizes Beautiful Brain small white $16.00 USDBeautiful Brain med white $16.00 USDBeautiful Brain LG white $16.00 USDBeautiful...

October 10, 2017 Dear Honorable Congressman, Senator, and other Legislators: On behalf of We Are Rare, Inc., we are pleased to invite you to attend our 2017 Convention titled “We Are Rare, My Beautiful Brain”, to learn about Schizencephaly...

We want to say how much we appreciate the efforts by the individuals and families in Texas. They were able to get Schizencephaly Awareness Day acknowledged in Texas through Governor Rick Perry. Keep up the great work!

So everyone understands the legality of making an awareness day official. We have to be consistent and show that we have done this for a multiple amount of years. ( This being our third) It has to be documented ( which we have online and via newspapers)...

Just the contribute to the amazing accomplishments of our children who have rare brian disorders is their ability to participate in sports. Sports can be an instrumental tool in helping your child socially in addition to promoting mobility and healthy...

We are sponsoring two fundraising efforts with It’s All About Life to help a family in need. Please support us with this by purchasing any of the following t-shirts and/or iPhone cases. Order a “Touched by an Angel” iPhone by following...

Help Line for Families

We Are R.A.R.E. not only looks at providing help for the individuals with RARE disorders but their families who care for them too. We understand the stress and hardships involved to support our love ones. You are not alone! Please reach out to us at help.me@wearerare.org if you need someone to talk to for emotional support.

Categories

Categories

Donate to R.A.R.E

HELP LINE FOR FAMILIES

We Are R.A.R.E. not only looks at providing help for the individuals with RARE disorders but their families who care for them too. We understand the stress and hardships involved to support our love ones. You are not alone! Please reach out to us at contact-us@wearerare.org if you need someone to talk to for emotional support.