Saturday, January 4, 2014

hip hip hooray!

Sildenofil is her medication for pulmonary hypertension. We need her off of this drug for a month before measuring her pressures again in her February heart catheterization. This is a HUGE step for her. This mama is nervous!!! I already feel like I see effects of her not being on it today and I could be completely phsyco but I'm just being honest. Her color looked different (bluish), her walk was cautious, her energy was low and appetite was small. I am holding on to hope that her body is adjusting and she will continue to thrive without it. None the less, my eyes are wide open and my mama antennas are pulled as high as they can go. We have an echo next week, labs the following and then NOTHING until we head to California in early February!

The weather is gorgeous here! I think that's not the case for many of you so enjoy these photos of our girls enjoying their favorite Christmas gift... snow in the driveway, while all the grass is green in the background! We are far from snowed in here :)

Hope all goes well off the med... But do keep those antennae up...no one knows her like you do!!!And how did you get snow in your drive? How long did it last. Here in MN we have plenty to spare and some cold too if you are interested !!!

We continue to pray for Ivy Joy here in AL!I felt the same way you do after they drastically reduced Kevin's sildenafil. But he has done fine and I think in the long run it is a good thing! More and more studies show that sildenafil isn't as effective in some children with certain heart conditions. We will keep on praying for your little miracle girl!Hugs!

About Us

I'm an ordinary girl, married to an extraordinary guy. We have 6 incredible children including 2 adorable little girls from China. We love Jesus and choose to walk the road He paved in advance for us. We seek to be more like Him every day. We are far from there yet, but we are so grateful that he allows us to start fresh again every day.