Support/Unite Families

When our daughter Eliza was diagnosed with Sanfilippo Syndrome at the age of four, we decided we had to do everything possible to find a cure. It was the motivation that any parent can relate to as you will “got to the ends of the earth” for your child. So, we created Cure Sanfilippo Foundation in order to pursue every avenue to change the fate for every Sanfilippo child, not just our daughter. TIME is not on these children’s side, so the URGENCY is paramount.
Cure Sanfilippo Foundation has come to represent a collection of Sanfilippo families (more than 80 globally and growing) and friends/supporters from across the country fighting to save our children under a single umbrella.
There’s HOPE for a cure, and that HOPE comes from the ACTION that is being taken from supporters like you, to further this mission to save children, and cure Sanfilippo.

Glenn and Cara O’Neill

Parents of Eliza, Co-Founders of Cure Sanfilippo Foundation

Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization

All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.

This is led by proactive families of children with Sanfilippo Syndrome and their supporters, who work tirelessly to change the fate and future for these children.

Donations may be tax-deductible.

Latest Foundation News

"LIGHT UP THE NIGHT" for MPS on Friday, May 15. Friday is a big day in the MPS community every year. It is International MPS Awareness Day. This Friday, May 15, when it gets dark, families, friends, and supporters will light candles outside their homes -- in their...

Uplifting Support Seen on GivingTuesdayNow Supporters around the world answered the call of "A Cure Can't Wait" and donated an astonishing $146,202 on GivingTuesdayNow, May 5, to Cure Sanfilippo Foundation. Thirty-three families of children with Sanfilippo Syndrome...

On May 5, Cure Sanfilippo Foundation submitted the combined Sanfilippo Patient Advocacy Group Response to the U.S. Food And Drug Administration's (FDA) February draft guidance regarding the development of drugs to treat MPS III (Sanfilippo Syndrome). The 39-page...

The novel coronavirus pandemic can have a serious impact on people with rare diseases and their families. Yet, not much is known about it. The Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH), is conducting a...

Life looks quite unfamiliar for all of us. But we take heart because one thing hasn’t changed: people are still thinking of others, finding ways to make a difference. Which is why families with Sanfilippo Syndrome are asking for help. Right now. Like everything else,...

Upcoming Events

Help raise critical funds for research and/or trials to help find a cure for Sanfilippo Syndrome by joining the 4th annual Abby's Alliance 5K 2021. It will be held March 20, 2021, in Memorial Park in Houston, TX, in honor of Abby Wallis. All money raised goes to the...