Cancer Survivors Network - Comments for "total blood transfusion for metastatic cancer"http://csn.cancer.org/node/252843
Comments for "total blood transfusion for metastatic cancer"en-csnluvinlife2 sorry I just saw this commenthttp://csn.cancer.org/comment/1338880#comment-1338880
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1327512#comment-1327512">I agree Pete :)</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I have published my latest rgcc results</p>
<p>you get alot more than just a ctc count for the 2000. </p>
<p>actually it was 2600 aussie dollars.</p>
<p>hugs,</p>
<p>Pete</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 22 Feb 2013 12:06:17 +0000pete43lost_at_seacomment 1338880 at http://csn.cancer.orgi don't know, read the bookhttp://csn.cancer.org/comment/1327695#comment-1327695
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1327159#comment-1327159">Hi Pete</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>only joking, we are all so different with completely different immune systems.</p>
<p>the best advice by far i have had personally is from doctor Nesstlehut in duderstadt my vaccine guru.</p>
<p>i am on about 100 supplements a day and on and off label meds.</p>
<p>the key elements are thymus exact liquid, i bought these back from germany cost $1000 for 6 weeks, 2 shot per week. cannot get it here.</p>
<p>and psk mushroom, i got a few different types, but the basic dose is 1gram break, lunch, dinner.</p>
<p>see anns post re stress, thats important. following the holistic model.</p>
<p>sauna therapy, exercise, detoxing come to mind.</p>
<p>avoiding chemo ( ouch sorry )</p>
<p>it depends completely on the individual and an assessment of immune function, not just high level counts that we go by.</p>
<p>its all in the ratios of about 40 differnet components of the immune system, that I am eager to understand.</p>
<p>its very complex, and no doctors bar one impressed me. but i paid hiom $10,000 for the vaccine. you only get what you pay for , they say in life.</p>
<p>i am seeing my conventional sydney onc agsin tomorrow, i am asking for a referal to a local immune specialist. i want to have comparable immune assays in english locally.</p>
<p>limiting vit c i agree with.</p>
<p>hugs,</p>
<p>Pete</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 21 Jan 2013 13:22:16 +0000pete43lost_at_seacomment 1327695 at http://csn.cancer.orgI agree Pete :)http://csn.cancer.org/comment/1327512#comment-1327512
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1326792#comment-1326792">not quiet my understanding kathy</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>That why I said no dectable disease. I know the chances of tiny tumors or remaining "undectable" disease remains high. I was looking from a medical standpoint if tests show nothing then it doesn't make sense to go through something like a blood transfusion to treat "nothing". If I can get to NED, I will not consider my cancer gone and will continue to weaken any remaining disease with my alternative treatments, perhaps even some low dose xeloda for a period of time until I've had a few consistent scans and my ctc test comes back from Germany with the numbers my nat onc is looking for. <img src="/sites/all/libraries/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-smile.gif" alt="Smile" title="Smile" border="0" /></p>
<p>ps. $2000.00 is a lot...I don't pay anything remotely close to that for my ctc.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 20 Jan 2013 21:30:29 +0000luvinlife2comment 1327512 at http://csn.cancer.orgThanks Pete, i enjoy readinghttp://csn.cancer.org/comment/1327168#comment-1327168
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1326792#comment-1326792">not quiet my understanding kathy</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Thanks Pete, i enjoy reading what you have gathered from your "experience". It's hard for people to debate/question you since you have already done so much research on the topic in question. People can really learn from you. I'm just not into all kinds of opinions, but science-backed facts. </p>
<p>Some people on colon club are very good with research. In-depth research, not just google and paste something random.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 19 Jan 2013 14:59:02 +0000janie1comment 1327168 at http://csn.cancer.orgHi Petehttp://csn.cancer.org/comment/1327159#comment-1327159
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1327152#comment-1327152">immunotherapy emerging, its the basis of my strategy</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Pete, what in your opinion is the best way to build up your immune system? With all the studies lately that are saying anti-oxidents can effect chemo treatments, I don't know what to do or who to believe.</p>
<p>I also think your immune system plays a huge part in the fight on cancer, but when I asked the onc, she said to limit supplements such as vitamin c as well as anti- oxidents. It is very confusing.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 19 Jan 2013 14:38:13 +0000richlscomment 1327159 at http://csn.cancer.orgimmunotherapy emerging, its the basis of my strategyhttp://csn.cancer.org/comment/1327152#comment-1327152
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1326931#comment-1326931">Hi Pete</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>my phd friend, is really really smart. he has seen the damage of blood transfusions and the immune system. i trust his advice, and share it.</p>
<p>another point of difference between conventional medical wisdom.</p>
<p>protecting our immune system = better quality and quantity of life in my not so humble opinion.</p>
<p>the irony, is that chemo nurses and oncologists are experts at destroying immune systems, not protecting or rebuilding them.</p>
<p>none of the 6 oncologists could offer advice to me to get my white blood cells up. but then they would have to do detail immune system test which would prove the damage of chemo. we could not have patients seeing that, they would question the rational of chemo.</p>
<p>alas blood transfusions fall into the same category, if you have to have one, do it and don't stress. my doctors knew my clear preference against transfusions.</p>
<p>discussing interesting therapies always a pleasure my friend.</p>
<p>if you want proof then do a detailed immune study before and after chemo. ironically the immune system in an active chemo regime maybe so deficient that the transfusion maybe safer, ie no cells to mount an immune response. how ironic.</p>
<p>hugs,</p>
<p>Pete</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 19 Jan 2013 13:53:40 +0000pete43lost_at_seacomment 1327152 at http://csn.cancer.orgHi Petehttp://csn.cancer.org/comment/1326931#comment-1326931
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1326788#comment-1326788">this was just advice from a trusted expert friend</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I read the site you referenced and it appears to be talking about "incompatible blood" being transfused and the actions the immune system takes to that "foreign invasion". </p>
<p>I was with my sis at her chemo treatment today and asked about the issue of blood transfusions. The bottom line is that blood transfusions can be medically safe when the proper care of cross type and match plus screening for diseases such as AIDS is done on the supplied blood. That said, I think that the medical community does not want to transfuse anyone unless it is absolutely necessary. Even for planned surgeries, many docs prefer for the patient to pre-donate their own blood, just in case it is needed.</p>
<p>There is no doubt about it, introducing foreign matter, be it blood, chemo, radiation, meds, etc. can have an effect on how our body responds.</p>
<p>As always it is interesting to debate things with you.</p>
<p>Hugs,</p>
<p>Marie who loves kitties</p>
<p> </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 18 Jan 2013 20:52:52 +0000Lovekittiescomment 1326931 at http://csn.cancer.orgnot quiet my understanding kathyhttp://csn.cancer.org/comment/1326792#comment-1326792
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1326349#comment-1326349">NED</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>the ctc's rarely get to zero, a count above 2 indicates a metastatic risk. no else here has done the rgcc analysis or discussed the results.</p>
<p>the point of ned, is a false hope is a sense, as the tumours that exist say are 2.9mm, when the ct picks up 3mm and above so, so its possible to be ned and still have tumours.</p>
<p>my exact case at this very moment, and why the surgeon advised a full hipec/peritonecomy while i am NED and CEA almost in normal range.</p>
<p>here is the http://www.rgcc-genlab.com/?personnel</p>
<p>the science here is aimed at reducing ctc's, it works well. my current success is based on these tests and recommended chemo/natural therapies.</p>
<p>you can soon order the test online, it costs about $2000 and is a good investment in my opinion, i am doing my second full test in the next few days to guide my maintenance therpay in the german labs.</p>
<p>i hope this helps, my friend says the developer of this test will get a noble prize one day, i would not be surprised.</p>
<p>I am grateful the test exists, i have more confidence in its results, but having a very competant alternative specialist to analyse and guide therapy essential. you cannot do it yourself, i tried and failed, but in expert hands the reports are criticial to beating this illness in my opinion. a few studies cited on the companies website.</p>
<p>hugs,</p>
<p>Pete</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 18 Jan 2013 14:23:05 +0000pete43lost_at_seacomment 1326792 at http://csn.cancer.orgits really really hard ccfighterhttp://csn.cancer.org/comment/1326789#comment-1326789
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1326198#comment-1326198">What we need is a cancer cell</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>i think someday is almost here</p>
<p>see the science of the rgcc lab tests, the test thats guided my treatments and current remission almost.</p>
<p>http://www.rgcc-genlab.com/?personnel</p>
<p>its a very innovative idea, the issue is that the liver filters these ctc, it seems to be where most mets start or the fine capilaries of the lungs.</p>
<p>the issue is that ctc's appear to be released by tumours, so filtering all your blood as a one of is next to useless.</p>
<p>what we need to do is make our body ctc unfriendly, lots of therapies and ways of attempting this , but they are not accepted.</p>
<p>hugs,</p>
<p>Pete</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 18 Jan 2013 14:13:22 +0000pete43lost_at_seacomment 1326789 at http://csn.cancer.orgthis was just advice from a trusted expert friendhttp://csn.cancer.org/comment/1326788#comment-1326788
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<p><em>In reply to <a href="http://csn.cancer.org/comment/1326006#comment-1326006">Hi Pete</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>dear marie,</p>
<p>from memory and this was told to me prior to my resection, its the fact that our blood is made up of many different types of cells, of course the dna will be different between donor and recipient. i am on a research holiday, my friend is also away diving until after i leave for germany, so my opinion is just that, but its come from a reliable source. the same one that advised against chemo at the very beginning of my treatment, for which i am grateful.</p>
<p>but because you are always so helpful here is the detailed info.</p>
<p>http://www.ncbi.nlm.nih.gov/books/NBK2265/</p>
<p>our immune systems are so fragile, stress disables them, love boosts them, operations disable them and so do toxins bpa's and mercury etc etc.</p>
<p>a transfusion is just another assult.</p>
<p>hugs,</p>
<p>Pete</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/252843%23comment-form">Log in</a> or <a href="/user/register?destination=node/252843%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 18 Jan 2013 14:08:18 +0000pete43lost_at_seacomment 1326788 at http://csn.cancer.org