A rare disease is defined as one that affects fewer than 200,000 Americans. Nearly 7,000 rare diseases impact the lives of almost 30 million Americans. Here at BFS, a number of these rare diseases are very familiar to us and to our patient community. [Read more…]

The Dysautonomia Foundation is presenting its annual Family Day and Conference for families who have been affected by Familial Dysautonomia (FD). Some in our PROSE treatment community have FD, a rare genetic neurological condition that affects the sensory and autonomic nervous systems causing a number of severe health problems including ophthalmologic problems. Each year, the Dysautonomia Foundation, dedicated to research, support, and public awareness of FD, brings together FD families for a day of information sharing, networking, and fun. [Read more…]