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Thursday, January 9, 2014

Today We Get Some Answers (I Hope)

If you've been following this blog for a while, you may remember that in addition to my son's gluten issues, we've also been battling an issue with his lymph nodes for over a year now. The lymph nodes in his head and neck are enlarged, and no one can figure out why. Before we took him off gluten and he was sick all the time, doctors attributed his constant sickness to their swollen state, but he's been gluten free for three years now and his lymph nodes continue to grow. They are just on the border line of being in the unsafe range, and he's been undergoing a battery of tests over the last year.

He's had several ultrasounds, x-rays for lung cancer, tests for leukemia and other illnesses, blood work, and so on. He's sick a lot. in fact, we had to wait almost 3 weeks to get the blood work done because he was sick, and several previous tests were pushed back for the same reason. The lymph nodes in his neck look like this, all the time. They're visible from across a room.

We were referred to another doctor who sent him for another round of comprehensive blood work, and the office called today to schedule an appointment this afternoon to discuss the results.

I know I shouldn't get my hopes up too much since all the other rounds of tests have come back inconclusive, but I can't help but hope we might be able to find some answers. Obviously I want everything to come back negative, but only if that means there truly isn't anything else wrong. If there is an issue we should be treating, then we need to get moving on treating whatever it is. It's weird to both want to hear that everything came back negative and that they've figured out what's wrong.

I just want my kid to stop being so sick all the time. Let's hope that today is the beginning of making that happen.

Anxious to hear how it went. I had an infected right gland as a kid and still have issues with it. It's not enlarged and I check it every day. I'm a RN so not obsessed with it but want to learn how to care for myself. I probably needed GF as a kid, oh well, no looking back and only forward I say.