An Examination of the Views of Parents of Children With Autism About Their Experiences at the Post-Diagnosis Period of Autism

An Examination of the Views of Parents of Children With Autism About Their Experiences at the Post-Diagnosis Period of Autism

Ömür Gürel Selimoğlu, Selda Özdemir, Gökhan Töret, Ufuk Özkubat

Abstract

The purpose of this study was to examine the perspectives of parents of children with autism regarding their experiences about their children's diagnosis and services that they receive in the areas of special education, health and personal needs. The participants of the study were 50 parents who were the primary caregivers of children with autism. A qualitative research method was used in the study. Semi-structured interview questions were developed and study data were analyzed using interpretive content analysis technique. Major research findings were presented under four themes: 1) time difference between the recognition of children's developmental differences and medical diagnosis, 2) assessment limitations experienced during the clinical diagnosis, 3) lack of support services for parental needs, and 4) collaboration problems among the various special education services. The findings of the study were discussed and implications for practice were provided.

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