Organisations and support groups can be invaluable for those with CFS as well to those who still are seeking an official diagnoses. CDC research has put the number that remain undiagnosed in America at 80% [1]. This is due in part that many doctors are still reluctant to give diagnoses due to lack of knowledge. For many, CFS organisations may be the first contact those with CFS may have for advice....

CFS/ME Organisations]]>15Scraping the site/data mining?Thu, 22 Nov 2012 05:30:24 +0000http://forums.phoenixrising.me/index.php?threads/scraping-the-site-data-mining.20556/
http://forums.phoenixrising.me/index.php?threads/scraping-the-site-data-mining.20556/invalid@example.com (AFCFS)AFCFS
What brought the idea to mind was a very subjective observation that passed through my mind while perusing the “Antivirals, Antibiotics and Immune Modulators” forum. After scrolling through many of the posts it just SEEMED to me that the contributors posting there had less “Recent Activity” on their profile pages than most other posters. It...

Supplements]]>21MedicationsWed, 06 Jul 2011 12:45:02 +0000http://forums.phoenixrising.me/index.php?threads/medications.4365/
http://forums.phoenixrising.me/index.php?threads/medications.4365/invalid@example.com (Cort)CortIf you are taking medications or know of CFS patients taking medications that are not on this list please provide in bold or in colors in the list - thanks!

Australian CFS/ME History and Events]]>34SymptomsWed, 11 May 2011 15:03:23 +0000http://forums.phoenixrising.me/index.php?threads/symptoms.4359/
http://forums.phoenixrising.me/index.php?threads/symptoms.4359/invalid@example.com (Cort)Cort
These are several lists of symptoms that have been provided by several researchers. They are a good start but are not comprehensive!Each will be listed by frequency and severity. The first was suggested by Dr. Jason and Dr. Vernon. The second is from Dr. Katrina Berne's CFS symptom. I would like to get more standardized symptoms dealing with pain (fibromyalgia symptom list) and the gut ( irritable bowel syndrome symptom list) and perhaps TMJ. Basically...

Personal Data]]>4Pace - analysis dumpTue, 08 Mar 2011 11:17:58 +0000http://forums.phoenixrising.me/index.php?threads/pace-analysis-dump.9122/
http://forums.phoenixrising.me/index.php?threads/pace-analysis-dump.9122/invalid@example.com (Esther12)Esther12
I'm going to post up something I started writing... decided was no good and gave up upon. Feel free to delete it all, change radically, or ignore completely. This is just to get us started:

Pace - analysis dump]]>Australian ME/CFS Advocacy Contacts ListMon, 30 Aug 2010 06:31:24 +0000http://forums.phoenixrising.me/index.php?threads/australian-me-cfs-advocacy-contacts-list.6023/
http://forums.phoenixrising.me/index.php?threads/australian-me-cfs-advocacy-contacts-list.6023/invalid@example.com (Melodie)MelodieAREAS WHERE ADVOCACY IS NEEDED
* More research funding into ME/CFS in proportion to the severity and prevalence of the illness
* Urgent research funding into ME/CFS and it's link to XMRV/HGRV. And the epidemiology of HGRV.
* Access to XMRV/HGRV testing
* Doctor Education
* More Doctor medical training into ME/CFS and its coexisting illnesses
* Public Education
* More doctors and treatment centres
* For getting certain consessions into some states, not all...

Australian ME/CFS Advocacy Contacts List]]>14Australian Advocacy Contact ListSun, 29 Aug 2010 08:11:03 +0000http://forums.phoenixrising.me/index.php?threads/australian-advocacy-contact-list.5754/
http://forums.phoenixrising.me/index.php?threads/australian-advocacy-contact-list.5754/invalid@example.com (Melodie)MelodieAREAS WHERE ADVOCACY IS NEEDED
* More research funding into ME/CFS in proportion to the severity and prevalence of the illness
* Urgent research funding into ME/CFS and it's link to XMRV/HGRV. And the epidemiology of HGRV.
* Access to XMRV/HGRV testing
* Doctor Education
* More Doctor medical training into ME/CFS and its coexisting illnesses
* Public Education
* More doctors and treatment centres
* For getting certain consessions into some states, not all...

(Cort tried to enable Tania and Melodie permissions to fix the wiki up. This did not work and messed up permissions for Melodie. She is unable to post, receive or send PMs but can edit the wiki.)]]>1Australian ME/CFS InformationSat, 28 Aug 2010 08:57:41 +0000http://forums.phoenixrising.me/index.php?threads/australian-me-cfs-information.6020/
http://forums.phoenixrising.me/index.php?threads/australian-me-cfs-information.6020/invalid@example.com (Melodie)MelodieCFS/ME Support Groups and OrganisationsThu, 26 Aug 2010 15:05:04 +0000http://forums.phoenixrising.me/index.php?threads/cfs-me-support-groups-and-organisations.5985/
http://forums.phoenixrising.me/index.php?threads/cfs-me-support-groups-and-organisations.5985/invalid@example.com (taniaaust1)taniaaust1
To link a page (chapter) to this book, open the page that you want to have as the chapter and click on the "book" tab. It will give you a list of all the pages in the wiki. You can select this book "CFS/ME Support Groups and Organisations" and then down the bottom right click "add chapter". Hopefully it will then appear in this index page as a chapter in this book.]]>CFS ResearchersWed, 18 Aug 2010 09:54:02 +0000http://forums.phoenixrising.me/index.php?threads/cfs-researchers.5792/
http://forums.phoenixrising.me/index.php?threads/cfs-researchers.5792/invalid@example.com (taniaaust1)taniaaust1CFS RESEARCHERS AUSTRALIA

Australia
Assoc Prof Janet Taylor (2010, she has currently Aust. government funding and is carrying out a CFS study) [1]
Andrew Lloyd (2010, currently is carrying out a Aust. government funded study) [2]
Dr Hugh Dunstan, Senior lecturer and researcher into chemicals and' M'E/CFS, microbiology and biochemistry, Newcastle University....