Decision makers

Authorize and Make Available Compassionate Use Drugs for ALS Patients NOW!

As a community of people with ALS, and their caretakers, we are advocating for the acceleration of ALS treatments that will slow progression.

ALS, sometimes referred to as Lou Gehrig’s Disease, is a progressive, fatal, neurodegenerative disease with most people dying within two to five years of diagnosis.

Terminally ill patients with little to lose want access to what is available that has shown safety and efficacy as soon as possible. We believe that Phase 2 drugs showing safety and efficacy, such as Dexpramipexole, and NP001, as well as off label treatments such as Tamoxifen, should be made available to us through Compassionate Use Now.

Join us in calling for COMPASSIONATE USE DRUGS FOR ALS PATIENTS NOW!

If you'd like additional information, or if you'd like to volunteer to help us please email:edjohnson@alumni.duke.edu We need many more energetic committed folks to join us.

I just signed the following petition addressed to: Corporate Citizens.

----------------Authorize and Make Available Compassionate Use Drugs for ALS Patients NOW!

As a community of people with ALS, and their caretakers, we are advocating for the acceleration of ALS treatments that will slow progression.

ALS, sometimes referred to as Lou Gehrig’s Disease, is a progressive, fatal, neurodegenerative disease with most people dying within two to five years of diagnosis.

Terminally ill patients with little to lose want access to what is available that has shown safety and efficacy as soon as possible. We believe that Phase 2 drugs showing safety and efficacy, such as Dexpramipexole, and NP001, should be made available to us through Compassionate Use Now.

Join us in calling for COMPASSIONATE USE DRUGS FOR ALS PATIENTS NOW!

If you'd like additional information, or if you'd like to volunteer to help us please email:edjohnson@alumni.duke.edu We need many more energetic committed folks to join us.