Life with my 11 wonderful children.My youngest daughter Ruby is blessed with Down Syndrome.

Tuesday, June 2, 2009

Therapy

I'm so excited that Ruby is doing well with her therapies but couldn't they just let you be happy about an achievement for a few days before you have to start thinking about what's next,what your child still is not doing.I know it's the therapist job to point out things your child needs to be doing but when your child makes an accomplishment can't they just give you a couple of days.I guess sometimes I just feel overwhelmed with everything that needs to be learned.Well,off to therapy!

I agree with you 100%. The only thing I can say is TAKE ALL THE TIME YOU WANT AND NEED to savour and celebrate Ruby's achievements.

There will always be "something to work on"...And maybe that is the way with all children? BUT when our kids with Ds do accomplish what we know that has been SO hard for them to do, it is cause for GREAT celebrations!

I completely know what you mean. We were so excited when holding Sam's hands and counting to three and on three he would pull at our hands and stand right up. We showed the therapist and she was like great but we need him to do it this way. I was like argh!!!! So, we will reveal in each others kids accomplishments and we know for ourselves they are huge and worth savoring!!

I hear ya! I guess that's their job and they're letting you know that they're committed to keep Ruby moving forward. Our Music Therapist wants to quit working on walking (he's not walking or standing independently yet) and focus on signing. Here's an example of her not even waiting for the milestone to be met. I guess she's confident he'll do it sooner rather than later.

It is true that we as Therapist can sometimes be overly focused on the end goal that it is sometimes difficult for us to stop and enjoy the little nuggets along the way. But you enjoy them with her - our children need to celebrate their accomplishments.

My Family

Psalm 139:13-16

13 For thou hast possessed my reins:thou hast covered me in my mother's womb.14 I will praise thee;for I am fearfully and wonderfully made:marvellous are thy works;and that my soul knoweth right well.15 My substance was not hid from thee,when I was made in secret,and curiously wrought in the lowest parts of the earth.16 Thine eyes did see my substance,yet being unperfect;and in thy book all my members were written,which in continuance were fashioned,when as yet there was none of them.

Trouble

" Trouble is a strange thing.It arrives in dark robes of despair and uncertainty,and not until it is already behind us do we recognize that our unwelcome intruder has been God's love and mercy in disguise.How often the Lord uses difficulty to give us"the best" in place of "the good."Jessie Rice Sandberg

Butterfly

"Anyway, there is a place, and I'm sure it is different for every parent, where your idea of your child having Down syndrome becomes released from those fears and your child is more beautiful than you ever imagined -- like a butterfly."MOM LOOK! I'm flapping my wings like a butterfly!"♥Lianna