The Ups, Downs, and Sideways Progress of a Woman Conquering Life with Chronic Illness

Friday, November 20, 2015

Day 20: I Keep Waiting

Every morning I wake up hoping and praying I feel better. It isn't happening. What is happening, however, is my mental strength is being unduly tested. Severely. Each day my grasp on health and stability slips further from my reach. I keep telling myself this will pass, the darkness will lift, the flare will subside, and I will NOT lose all my hard-fought progress to this illness again.

Not reacting to such a temporary state of being is the greatest gift I can give myself, right? For every time I let my life swirl into the gutter of chaos, it's only that much more work to get back up again. And I always get up again. So if I just don't slide so far down in the first place, this never-ending flare is entirely manageable, right? Except ten years isn't temporary. While I've been on an upswing (albeit a very hard climb) these last few years, the last ten years have been utterly life destroying. And I'm so unbelievably damaged, that is what's making it so hard to get through this flare with a modicum of hope.

So I have a choice. I can keep reacting. I can keep being pissed off because I hurt so bad or am getting confused so easily. I can continue to feel imprisoned in my life because of my illness. I can continue to hate the world because nobody can help me get better, or even remotely understands how sick I am. I can continue to collect injustices and live in fear. Each day can be a deeper descent into the madness of sick. But I've seen the bottom of where this road leads, and it's an unbearably awful place.

So I can, once again, stop the ride and accept my reality. Soften my approach and allow love into my heart. Start looking at a half-full cup through rose-tinted glasses, damn it! I know this is expecting the extraordinary, when I'm such a naturally grouchy and feisty individual, but it's the only way I know how to refuse to let sick be all I am. By counting one blessing at a time, one choice not to react at a time, one push to positive at a time, maybe it won't make waiting for that elusive tomorrow so hard.

4 comments:

I'm so sorry you are feeling that way. We here know how sick you are, even if others in the world don't. We know, because we feel the same way.

I just started working full time again. I have a pharmacy of medication in my desk to knock back whatever symptoms hit me each day. I'm so beyond tired and in such pain at the end of the day, that I can't do anything else. I don't know how I'm going to be able to do this for a couple more decades. It's so hard, and it hurts so much. Even making "fun" plans scare me now, because I wonder how I'm possibly going to have the energy to follow through. It's awful.

I appreciate your blog, because then I don't feel so alone. Healthy people don't understand and they want to go out and do normal things that I can't do. Thank you for what you do.

Greetings to everyone that is reading this testimony..I want to use this medium to testify of how i got cured totally from Lupus,I was diagnose with Lupus 2 years ago, and ever since i have done a lot of Chemo and Radiation but nothing worked out for me, but only damaged my immune system and render me weak and helpless. I came across testimonies on how Dr Molemen healed Several patients living with Lupus and Herpes Virus, just with his herbal medicine which he normally prepare for them, after doing some research on this great man, i left no hope than to contact Dr Molemen with faith that God could also heal me with his servant medicine, to my greatest surprise after 2 weeks of taking Dr Molemen medicine which he sent to me, i am totally free and healed from Lupus. I’m now here to testify that am no more a Lupus patient, and now am so much happy if you need help for your HERPES CURE OR LYME DISEASE/CANCER OR HIV&AIDS contact him today for his healing medicine,email ( drmolemenspiritualtemple@gmail.com / dr.molemenspiritualtemple@yahoo.com) or call him on +2347036013351.

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About the Author

Disabled at the age of twenty-eight by the mysterious illnesses chronic fatigue syndrome and fibromyalgia, five years later I survived two life-threatening strokes. Clinging to life and determined to change my trajectory, I embarked upon a journey to reclaim my lost health. Never easy but always worth it, I write to share the reality of both embracing and overcoming a life most unexpected. Thank you for joining my thorn-riddled stumble through the complexities of living with chronic illness.

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Disclaimer

The author of this blog is a patient. All information contained in this blog pertains to my personal experience and is for informational purposes only. It is not a recommendation or suggestion for any other patient. Please consult a doctor for diagnosis and before beginning or stopping any treatment or medication.

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All material, written and conceptual, contained within this "Chronicles of Fibromyalgia" blog are under copyright and the sole intellectual property of the author. Any use or reproduction of these materials is strictly prohibited without the expressed written consent of the author."Chronicles of Fibromyalgia" "The Ups, Downs, and Sideways Progress of a Woman Conquering Life with Chronic Illness" "The Fibromyalgia FunHouse" "Purple Pain Code: Lilac-Light, Mulberry-Medium, Amethyst- Awful" All Materials Copyright 2010-2017 Leah Tyler.