Tuesday, May 29, 2007

5 days post-op

I'm healing up very nicely from surgery.

My nose is getting better. A shower or a little time over a steamy pot is enough to loosen things up and make me comfortable. I think that if my biggest annoyance with brain surgery is a little swelling and stitches in my nose, well then things went very well indeed! I need to send the surgeon, Dr.Jho, more than just a thank you card. I'll have to find a way to ask Sid at SurgeonsBlog what would please a surgeon the most from a patient filled with gratitude. Dr. Jhospecialises in minimally invasive techniques for Brain and Spine surgery. He can do surgeries that do not exist to fix problems that are taken for granted as permanent elsewhere. His innovations, dedication and attitude impressed me to the core and I have searched the continent for 'The' Surgeon. His post-op morbidity statistics were the best I have seen.

I pay strict attention to the Diabetes Insipidus statistics, both transient and permanent, for a few reasons. Foremost, because I know a wonderful woman who has a bad case of DI and lives attached to her nasal medication. The ongoing horrors she endures to ensure she has adequate medication, medical coverage w/o pre-existing condition clauses, she ends up w/ Rx's that do not last as long as they should (due to medication distribution inside of the dispenser), her insurance regularly rejects paying for the $1000+ a month med. That alone is enough to feel constantly at war. I think of her often and what she endured, not just now, but to get to her diagnosis.

People with instances like hers opened my eyes to the life that begins after the cure, and I decided to do my very best job guiding my post-cure life before I got there. My key was the very best minimally invasive surgeon I could find on the planet. I found him, with much help from selfless and thorough Cushing's advice source MaryO'Connor'sCushings-help.com. Mary is my true hero in the lifelong Cushing's story of my time. Without her dedication to Cushing's and helping other people find help, I would be somewhere today lost & still fluttering in the wind, undiagnosed or probably dead.

Mary runs her site out of pocket, so please stop over and donate to her cause, I use Paypal. :) She is truly and directly saving lives with her work, and at the very least should not have to be worried about money to keep the place going. She also has health issues of her own that I would prefer to see magically disappear and fix, for Mary deserves a long healthy happy life with Tom. :)

The Start Of My After-Cure Life:

Dr. Jho took the entire tumor without disrupting the pituitary gland. He advised to leave the Rathke's Cleft cyst inside of the pituitary alone, for the same reason: "preservation"

Today is post-op Day 5, so we arrived to do my blood work this morning @ our local hospital. The lab technician was very well-schooled on ACTH draws and it turns out that their lab computer system is well-programmed. Normally I have to have fight to get the tech to ice the drawn immediately and spin it down right away. Their tag system had it on the vial slip. That was refreshing! And here I am in rural NY, they did it right. Go to LosAngeles and see who you have to throw down the hall to get a glove baggy of ice and a centrifuge. LOL

I'm trying to sleep more, so I am off to bed. I wanted to show the progress with the facial swelling. My dimple areas are back (true dimples, not those fat folds LOL) and I can feel my cheekbones coming to the surface. My legs are still swollen and such, but I'm being patient. Just trying to take it easy and get better. I still have a slight headache and my vision hasn't recovered much more, but I think it'll just take time. Swelling and whatnot. ~ Lisa

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