Category: Lifestyle

I’ve said it before, and I will say it again: we are one of the “lucky” families who have been able to receive a diagnosis, especially so early in Lorelei’s life. I firmly believe that her early diagnosis (thanks to research and patients before us that lead to new testing and discoveries) will help her Read more about Today is Rare Disease Day![…]

Who is this little girl?! And where has the time gone?! I haven’t done a heavy, heartfelt Friday post lately. Partially because I have gotten some push back and comments from folks recently, saying things about my “depressing posts” or making judgements on my choices (like finally feeling like I can/should go out of town Read more about Where Has The Time Gone?[…]