The newest research about living with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (ME/CFS)/fibromyalgia, with personal observations
(the most pertinent parts of long articles will be highlighted for the reader)

About The Author

On March 4, 1988, I was diagnosed with Post-Viral Syndrome, which CDC soon decreed had to be referred to by the silly name "Chronic Fatigue Syndrome". My symptoms definitely traced back to a severe flu-like illness with a 105 fever for several days in mid-February 1987.
Despite relapses and increasing symptoms, I continued to work full-time as a legal secretary/paralegal -- even when I had no Quality of Life because I had to spend every non-working hour in bed so I could work the next day -- until February 2000, when months of severe sleep disturbance and ever-increasing symptoms (due to sleeping 2 hours or less a night due to the pain) cost me my job.
The doctors and judge didn't want to hear about failed attempts to return to work; they just assumed I don't want to work. "Don't confuse me with facts, my mind is already made up."
Since ADA will not force an employer to provide the accommodations I need, I started my own business so I could lie down whenever I needed to. I do proofreading and editing from home.
Visit www.CFSfacts.org or CFS Facts at YahooGroups or on Facebook if you want to learn the truth behind the myths.

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Saturday, April 7, 2012

"Unfortunately, there is very little formal research on pregnancy and CFIDS, so most of what is known is medical opinion rather than documented fact. ... approximately one-third of CFIDS patients experience a worsening of their original symptoms after giving birth—almost like a bad relapse."

Wednesday, April 4, 2012

Although they have a common name, diabetes mellitus and diabetes insipidus are two entirely separate conditions with unrelated mechanisms. Both cause large amounts of urine to be produced (polyuria), and the term diabetes is derived from the Greek name for this symptom. However, diabetes insipidus is either a problem with the production of antidiuretic hormone (cranial diabetes insipidus) or kidney's response to antidiuretic hormone (nephrogenic diabetes insipidus), whereas diabetes mellitus causes polyuria via a process called osmotic diuresis, due to the high blood sugar leaking into the urine and taking excess water along with it.

"...For Jarrett, like anyone who has reached age 66, has been throughhis share of troubles. In addition to the aforementioned dissolutionof his marriage, he was struck by chronic fatigue syndrome in thesummer of 1996 and housebound through 1998.

When he slowly re-emerged from that extended period of silence, hewas, understandably, transformed, musically and otherwise.

"That had a more profound effect than anything else that ever happenedto me," says Jarrett. "It took away — I can't think of the right word… but I became humbled by that experience, and determined.Simultaneously humbled and determined, but the determination was thatI would not stop improvising. If I could ever play again, that's whatI would do.

"All the things I used to say to my students, like, 'Play like it'sthe last time you will ever play,'" suddenly had literal meaning forJarrett himself.

"They were things I thought I knew, but I knew them so much betterafter that illness.

"Like, maybe this is the last time, And what if the last time was thelast time. And that pissed me off. And I had chronic fatigue syndrome,so you can't really be pissed off, because it takes energy. So thepatience that whole time required was unbelievable."..."

The full story can be found here:http://www.therepublic.com/view/story/MUS-JARRETT_7646301/MUS-JARRETT_7646301/