The problem of Morgellons is primarily one of a stark divide between the perceptions of the doctor on one hand, and the patient on the other.

The doctor sees a varied set of physical and mental symptoms that could be caused by one or more conditions. They see lesions on the patient’s body that often look like the patient has scratched themselves. They also see the patient pointing out things on their body, like lint, hair and specks of dirt, and they hear the patient say these things emerged from their body. They hear the patient insist they have a disease called “Morgellons” that has only recently been discovered.

The patient sees the doctor trying to “explain away” what are, to them, obvious symptoms. The patient thinks they feel the the fibers move, and emerge from their body. The patient is frustrated by the doctor’s suggestion that there might be an emotional component to their symptoms. The patient rejects the doctor’s diagnoses and substitutes their own.

In this post, I’m going to focus on the doctor’s perception of these patients. I feel what these fifteen doctors and professors say here really encapsulates and explains many of the problems, and answers many of the arguments surrounding “Morgellons”.

“This is not a mysterious disease,” says Dr Norman Levine, a Professor of Dermatology at the University of Arizona. “If you polled 10,000 dermatologists, everyone would agree with me.” He says he has seen 100 patients suffering from such symptoms, and they responded well to treatment, including a drug called Pimozide, which is used for chronic schizophrenia. According to Dr Levine, they are suffering from a monosymptomatic disorder in which they are absolutely convinced something is in their skin, a delusional parasitosis. He says he has studied the fibres his patients bring in by the bag-load and they are textile in nature.

Michael Girardi, a dermatologist at the Yale School of Medicine, had never heard of Morgellons but when its symptoms were described to him, he was reminded of another disorder that is well known to doctors. “They just renamed it,” Girardi told LiveScience. “We just call it delusions of parasitosis.”

“It’s basically when a patient thinks that there’s something coming out of their skin, a material or bug of some sort, when truthfully there’s nothing there,” said Stacy Beaty, a dermatologist at the Saint Louis University School of Medicine.
In medical schools, physicians learn to watch out for the “matchbox sign” of delusional parasitosis, when patients bring in hair, skin or clothing lint, sometimes in matchboxes, that they claim contain the insects or parasites responsible for their torment. However, when examined, the samples reveal no such thing. The lesions and scratches sometimes seen on patients with delusional parasitosis are usually self-inflicted, Beaty said.
“To rule out any infectious causes and also to put the patient’s mind at ease, a lot of times we’ll do skin biopsies,” Beaty said in a telephone interview. “If we feel that it’ll be helpful, we might also start different anti-psychotic or anti-anxiety medicines.”

In response to rising media coverage about the condition, the Los Angeles Department of Health Services recently issued a statement that said bluntly: “No credible medical or public health association has verified the existence or diagnosis of ‘Morgellons Disease.’ The current description of the disease is vague and covers many conditions.”

“In many cases, (delusional parasitosis) is a mono-delusional problem,” Lynch [Dr. Peter Lynch, professor emeritus in dermatology at the University of California, Davis] said. “The patients are normal in every other way. It’s always hard to get such patients to believe it’s a psychological problem. Some patients are very convincing, and I’ve had psychiatrists call me about referrals I’ve made and ask if I’m absolutely sure there’s nothing organic going on here.”

He said in the 40 years he has been practicing medicine he hasn’t seen a delusional parasitosis patient with physical symptoms that can’t be explained. He said while it’s possible some cases may be wrongly diagnosed, it’s unlikely a large segment of patients is suffering from a physical illness.

“You can miss a case and of course that happens,” Lynch said. “But are many being missed? In a word, no.”

When told of Dr. Bill Harvey’s successful treatment with antibiotics of Morgellons’ patients in Houston, Dr. Peter Lynch of the University of California, Davis said the “cures” are easily explained by the placebo effect. Patients treated with sugar pills, for example, often get well because they believe they are receiving medicine

Lynch said 80 percent of patients with delusions of parasites respond to psychotropic medication, an indication their illness is mental.

“Anecdotal evidence doesn’t carry much weight,” Lynch said. “There are many anecdotes of alien abductions, but that doesn’t mean they are true. And as for the pictures, you can see pictures of the Loch Ness Monster on the Internet, too.”

“If there were a peer-reviewed study, with 15 or 20 patients who have the same exact thing in their skins, then maybe I’d believe it,” Lynch said. “When fiberglass curtains first came out, many people with skin conditions were diagnosed with delusions of parasitosis (DOP). But studies showed these patients had tiny (fiberglass particles) in their skin.”

“There are a huge number of people out there with (delusional parasitosis), and most of them are not getting adequate treatment because they have this fixed belief,” said Dr. Dan Eisen, a UC Davis dermatologist. “It’s probably just a group of patients who haven’t gotten the appropriate treatment, and they’re calling it Morgellons.”

“Dermatologists are afraid to see these patients,” says Dr. Peter Lynch, professor emeritus of dermatology at the University of California, Davis. He says he has examined about 75 people with Morgellons-like symptoms in the past 35 years and believes they suffer from delusional parasitosis–literally, delusions of parasites in the skin. It’s a diagnosis people don’t like. One patient, threatening malpractice, convinced the state medical board to investigate Lynch. Another warned he had a pistol in the glove compartment of his truck, Lynch says. “He told me, ‘I’m going to shoot the next doctor who tells me it’s in my head.’”

Another prominent dermatologist, who insisted on anonymity out of concern for his safety, says he has diagnosed 50 or so Morgellons patients with cutaneous dysaesthesia–a neurological disorder that can result in the sensation of scuttling insects. And the spiny things? “In every case I’ve seen it’s a textile fiber, and it’s on the surface of the skin,” he says. He typically puts a cast over the lesions to prevent further irritation and after four weeks removes it. “Guess what?” he says. “The lesions are healed.”

Part of the problem with a disease like Morgellons, [Tim Jones, an epidemiologist from the Tennessee Department of Health] says, is that its symptoms are both vague and varied. Before public health officials can investigate, there must be a clear definition of the disease. The Morgellons Research Foundation says they have that definition, but there is no one symptom, or even group of symptoms, that defines Morgellons. [...]
“Trying to do studies on a group like this becomes virtually impossible because you may have 10 percent of the people who meet a real strict definition and a whole bunch of other people who don’t,” Jones says. “If you go through 10 patients and one is having discolored sweat, another one’s having pieces of spaghetti stick out of his skin and another one’s having, I don’t know, heel pain, it’s really hard to think what would tie these things together”.

“They suffer terribly, but it’s psychiatric,” said Dr. Dirk Elston, a dermatologist in the Geisinger Medical System in Danville, Montour County. “The fact that there’s something online to cling to, it’s a difficult obstacle for us.”

“The moment you mention psychiatrists, these patients get extremely angry,” said psychiatrist Alistair Munro, author of “Delusional Disorder.” “They say there’s nothing wrong with their brain. They have all kinds of explanations.”

“I found no evidence of [anything suspicious] in Andrew,” Dr. Heldrich [Dr. Fred Heldrich, a Johns Hopkins pediatrician] wrote to Dr. Frac after the visit. Then he added: “Ms. Leitao would benefit from a psychiatric evaluation and support, whether Andrew has Morgellons disease or not. I hope she will cease to use her son in further exploring this problem.”

“People don’t need the Internet as long as they’ve got the media,” said Edward Shorter, a professor of psychiatry and the history of medicine at the University of Toronto. Once the media reports come out about a new possible disease, even if it’s not real, some people see it, “and they say, ‘That’s what I’ve got. That’s my disease,’”

“I always feel that people should keep an open mind and I think there are scientific experiments, what we call evidence-based medicine, that can prove or disprove that an organism is causing this,” University of Texas Health Science Center at Houston dermatologist Dr. Stephen Tucker said.

“In dermatology, we speak about something called an ‘outside job,’ which is a skin eruption made by the patient himself,” said Dr. Noah Scheinfeld, an assistant professor of dermatology at Columbia University in New York and an expert on the psychiatric origins of certain skin disorders. “When you look at the pictures of these Morgellons lesions, they are classic for that.”

Self-excoriation is a common feature of delusory parasitosis, despite the individuals’ protestations that they do not scratch. Scratching may produce papular eruptions. Any repeated skin irritation produces a friction blister. Repeated rubbing of an area often produces a bleb (small blister) which, when ruptured, yields an open sore that may become infected. Once the sore begins oozing plasma and a scab forms, hairs and cloth fibers become entrapped in the sticky fluid. These flecks are dislodged and called mites or insects because they look like they have “antennae” and “legs”. Hair follicles often are pulled out; the follicle accompanied by the associated sebaceous gland looks like a worm. – Nancy C.Hinkle, Professor of Entomology, University of Georgia.

Logically, any credible study of Morgellons should have tried to explain the connection between the fibers and the symptoms. It’s not a good sign that no one has bothered to offer a formal starting theory on Morgellons fibers and that the [Morgellons Research] Foundation criticizes physicians for not looking for signs of Morgellons when they don’t really know what to look for themselves. -Dr. Chris Rangel, MD.

Noah Scheinfeld, assistant clinical professor of dermatology at Columbia University, says patients sometimes come in with pieces of their skin mixed with other materials in a box or a piece of Saran Wrap. “Such patients are a challenge to help and to treat,” he says. “They want to be believed above all and tend to be socially isolated.” Scheinfeld says the Internet has helped those with parasitic delusions to band together and reinforce each others’ beliefs.

“There really is no scientific basis at this point to believe that [Morgellons] is real,” says Stephen Stone, president of the American Academy of Dermatology.

793 Responses to “Doctors & Patients”

This may not be completely relevant, and yet, it sort of is. I’d like to share an interesting article concerning new clinical guidelines for pediatricians facing a common condition that’s been previously mishandled, dated June 29, 2006…

MAfer, al, sterlink and others who want some truth and BALANCE – - i applaude you for not standing down to these people. But you are enabling the continuance of this ridiculous site. the very best thing anyone could do is to boycott posting comments, with the exception of asking others to do the same. just sit back and observe their demise. how long do you think they would go on with just each other commenting?

ladies and gentlemen, you will never out do these cut and paste queens. they are not medical profsssionals. their information is forwarded via weblinks and pasted articles.

do not respond to their offensive remarks. do not respond to their yellow paper literature.

boycott commenting. do not give them reason to carry on. let them comment to each other.

boycott commenting on this site and warn others of the misinformation they give.

i had thought the same but i intend to cut their bullshit down using whatever means i can
shame smilykins
shame tc
shame to all those who decry this condition
lets shut this site down from within i say
or have this site as a tool for sufferers…
not a vehicle for tools
….yes smilykins, go on

im gonna go cut some fiewood today
keep up the fight to these pricks n if they r odious n rude
keep it short n sweet
but make sure one of you ALWAYS has the last word
remember…
we are suffering…
the question is then?
what r smkns , tc, etc doing making our recovery harder?
huh?
and why?

sarah, i think we overcame a great hurdle by speaking yesterday
and i think we need a well thought out approach
lets make this site a haven for the sufferers, not a blanching post of theses corrupt few

Well you know Al I don’t like to step on anyones toes, never had. Take the stage if you like. The above quotes? Oh I am still waking up, not much to say, other than – dah dah dah, de da de da dah dah you know…

It is sad that any morgie would even be looking on a “debunking” blog, knowing it will bother them. Then, all the lies and outlandishly immature behavior helps prove the entire situation. But the thing is, that they aren’t even remotely aware of it. I have been warning of it as much as I’ve been able to, of what they’re doing to themselves, and how it is not helping to support their cause, whatsover. I have been warning that stress is bad for anyone. What can be done to assist you morgie people, when you’re coming here purposely to be upset?. I even try considering that you want to understand your conditions, and that’s why you’re here reading. But no! You’re just out of control.

im outta control
i hate being in ur heads
but its SO much better than u guys being in ours
tall cotton you are simply so abusive that its probably fitting that you, i say you call him up,
interesting
see y’all at the crossroads
u evil
pithfork
lynchers

Your aussie female counterpart, Al, is the one who’s been displaying evil and even bragging about it, over the past several days. You know what most people do when something bothers them? They steer clear of whatever it is. You particular morgie people are drawn to it, like a moth to a flame, though.

lovie
i read everything sarah is understandably concerned, as i am, about our respective ailments
put simply smilykins
i adjure you
i command the prostrate thyself before god and confess
pretty simple
can ya leave this shit alone and have a
GOOD
HARD
LOOK
AT YOU
fuck, now i sound like dr phil

Smileykins Says:
September 22nd, 2006 at 4:28 pm
Your aussie female counterpart, Al, is the one who’s been displaying evil and even bragging about it, over the past several days.

Bragging???? I don’t think so. Displaying evil??? Not so.

I did actually drop back Smileykins to let you know that Sally is doing great. I thought you would be interested because we both love animals. The vet is amazed with her pick up, and so he gave her another injection of antibiotic and an anti-inflammatory. She looks really good. Makes me happy.

Anyway – I have learnt to not talk politics or religion. For one I don’t understand politics and don’t wish too, and two religion is a personal thing. I don’t believe it is something that should be shared with others, my opinion anyway.

i agree one shouldnt cast pearls before swine
however, in this case, just coz it hurts like anything,coupled with the bizarre nature
anything goes
this is not religion sarah
its spiritual warfare
there is a real difference

My comprehension is very good, Al. Sure, I don’t completely understand all the many intricate facets involved with, and surrounding, people who think they have “morgellons disease”, so, I don’t know what you’re referring to, entirely.

But I think you want me to search my soul, and judge myself, from either one of two things:

1. I’ve said something here that you mistakenly thought was about you, personally, which I know I haven’t
2. You feel that I have detracted from, or in some way tried to diminish the existence of your illness

Tell me how I have violated you, and I will try to make ammends, Al. I don’t set out to harm people. I always try to help them.

what gives you the right to dispute peoples aggrieved suffering?
you are a sanctomonious preening self righteous git
so tell me,
tell us all,
what gives you and that dumbass fucktard Tall cotton; the right to judge?
no fuking links, no disinformation u so blatantly speal off, just the salient facts…

All right. This will take some time, so excuse me. I’ll be back. I have a lot of difficulty using my hands to type, so it will be quite a while, I imagine, before I state my thoughts to you, on the matter here, Al. Unless, you dont want me to. Tell me, now, and I’ll gladly refrain.

We don’t deny that you are suffering. We can tell that you’re suffering by the way you conduct yourself. But all you are demonstrating is your emotional pain. We don’t deny that you have some physical ailment either, if you say so, but it’s not morgellons, and you don’t have what everyone else has. The morgies are suffering from a wide variety of illnesses, and there’s no reason to think that any of them are anything new. Morgellons is not a disease, not a syndrome, not a health condition of any kind. It’s made up bullshit, a lie. It has no pathogen, and hopelfully the cdc will soon make an announcement to that effect. Morgellons is nothing.

u refute the truth ala path reports, peer articles, there Are 3 salient documents, on the web , to prove morgellons, fuck u smartass….go find em, i did, so have others…you? all you do is go on like a fuking parrot

I don’t like it, that so many people are like they are, Al. I wish there were something that could be done about it. It seems pretty grim, and rather unlikely to happen, that quite a lot of people who think that they have “morgellons disease” can ever change their beliefs. It won’t matter to a hill of beans, to a lot of people, when the CDC issues their word. People have needed it, and wanted it, for themselves, in some cases. I know it isn’t that way in all the situations, but this thing is in the way of the truth, and a whole lot of people have been blinded by it. They can’t help it, either. Too many people have given up their power, and/or never known of it to begin with. That is why they all act like they’re fighting something big and mysterious for each other. Their battle needs to be fought for themselves, and by each individual, alone. Using “morgellons disease” for everything makes the road that lies ahead guaranteed to be a long and treacherous one.

I do like what you write Smileykins – especially the long and treacherous road comment. I do know which road I prefer to take. How’s the weather down your way? Things are picking up here in Melbourne, spring is a lovely time of year. I am so looking forward to getting away after Christmas to the country.

You don’t count so well, do you. This is my 11th post on this thread, but you’ve posted 35 times. Out of 80 posts you’ve almost post half of them, all by yourself. I just wanted to point out to everyone that you’re a liar. I think people can tell by reading what you’ve written that your butter has slid plumb off your toast.

Al, you asked something of me, and I don’t want to ignore you. In comment #64, you called me a “sanctomonious preening self righteous git”, and told me to tell you, and everyone else, what you interpret as TC’s and my “right to judge”. You’d refused telling me why you’d called me a coward, as well as some other accusations, earlier. I’ve asked what you’ve meant by all of these comments, but you won’t get to the point. As most angry morgie people always do, you warned of us of karma. There is no way I can make sense out of this, but I’ll at least have a go at it. You’re seeing truth as something bad, though, and running with, and enjoying lies.

All right, then, you must be mad because you need to believe in “morgellons disease”. Not knowing your situation, I don’t know why you need to believe in it. Maybe it fills a need, maybe you see things that are playing tricks with your mind. I have absolutely no idea. It’s very hard to get a straight story from anyone who thinks that they have “morgellons disease”. The reasons why are obvious, but maybe to those of you who cling to it so tightly, you honestly, actually, don’t know. I’m assuming you don’t, or that even maybe some of you can’t.

It is no secret that it is delusional parasitosis. Some morgies even admit that they’re wanting to try getting rid of those words and to try to replace it with the words “morgellons disease” or “fiber disease”. It is no secret how such people as this think. Since the birth of “morgellons disease” came along on the internet, and so many people with the inability to accept, and treat, their diagnoses of DOP joined up to this false belief, and ML got them to list all their other symptoms and conditions, her disease grew. People with everything under the sun can have it if they want to, and many do, for many reasons. It has replaced their real health concerns, both physical, and mental. There is an incorrect thinking going on in anyone’s mind who thinks that they all have the same symptoms. Getting people, of a particular mindset, to follow this has been very easily accomplished, having “fibers” as the one thing to get everyone to relate to.

Some people seem to have a particular dislike for Tall Cotton and me, because we talk so open and honestly about our experiences with what seemed like “morgellons disease”. Why, or how, could it have seemed like it? I’d never heard of it when I was ill, but he had, and thought that he’d had it, too. Years later, when I first heard of it, I went to MRF web site, and Lymebusters’ message board. People there tried to convince me I’d not only had it, but that I’d never gotten over it. What TC and I had both had was the same thing that many of them have, which was DOP. I didn’t know what DOP was until I saw it mentioned there.

Some people who think they have “morgellons disease” now, say things like, “Oh, well yes, THEY were both DOP, because he was on meth and she’s just plain crazy”. There have been many various, quite ugly, falsehoods brought to Michael blog about us, and they’re being spat out regularly, by some people. We know, as do most all other people, where these feelings come from. They’re completely fear based, and such people tell lies to try helping their own lies stand up against our truth. We’ve done absolutely nothing to these people.

We know with a firsthand knowledge, that when one is in a delusional state, that’s it…it is reality. What you think is real, is, and what you see as being real, is. Luckily, his was triggered by drug use back then, and luckily, mine was triggered by illness. Morgie people are sick for reasons that only they know, or they “should” know. TC is a smart man, and I’m not real dumb myself. Truth doesn’t scare us like it does most people. Maybe it’s because I’ve had several near death experiences over my lifetime. TC was way too close to losing his life too, a couple of years ago. I don’t care who doesn’t want to try and help themselves. People are free to remain as they are. I don’t think we’ve judged anyone, though, Al. We speak out against wrong things, though, me especially, but only our Creator can judge.

So why does Tall and smiley have access to the log records if they are not the same administrator?. Are you really counting posts manually? That seems rather peculiar and obsessive. Maybe you are experiencing excessesive compulsive behavior. The last posts are dominated by “Tall and Smiley”. Strange behavior indeed.

Forget this place. Two idiots do 80% of the posts, and old druggie and his christmas greeting.

Is TC’s #80 comment not self explanatory? He was referring to this topic threads comments. We don’t work for Michael’. Michael doesn’t work for anyone. None of us are part of an organization, nor are we associated with anybody or anything. Morgie people THINK whatever they think, all the time. Ya’ll just blow our minds with it.

margypoos?
are you censoring me?
you really are a little fascist now arent you?
do you embrace my meaning herr pig?
my comments dont come up on the main page no more
help me TC
help me smilykins
im sorry margypig
peristroika i say

Starlink, I think the posts stand by themselves. It does not matter who wrote them, either way they say has validity or it does not. Your other points are, well, pointless.
Perhaps you could address some of the actual issues that have been raised. Like the similarity of Morgellons to CFS and Menopause? Or the similarities between Neurotic Excoriations and the Morgellons Lesions?

We don’t often pretend here, other than just to humor you once in a while. Morgie people only want-to-believe and to-be-believed, so when you like doing the thing of accusing four or five of us as being the same person, and/or that all of us work for the CIA, the FBI, Big Pharma, Big Brother, Monsanto, George Michael, Barbara Walters, or that we’re doctors or med students, whatever, and whomever, if you refuse to believe us, what do you want us to do for you? If you really think these kinds of things, see a doctor about it. It’s really not too normal, and it’s definitely completely unwise, and often very unsafe, to “just believe” with no reasoning behind it.

smilykins this is a public domain
every time is see ur name
im gonna read ur drivel… then refute it
as usual
ad infinitum
leave it lass

Remember that, now, Al. You’d complained just prior to that of being sick of reading my comments, and I told you to skip past the name when you came across “Smileykins”. I advise people that come here to get upset, fairly regularly, to stop the behavior.

So, I’m going to turn on comment moderation. This means that your comments will be held until I approve them.

This is not censorship, I will approve all comments.

I just means that the pace of conversation will be slowed to a few times per day. This will allow people to formulate more reasonable arguments and responses, and cut down on the noise. It will also allow new visitors a more proportionate voice.

If you really want to argue in real time, especially with TC and Smiley, then go here:

98% dont read the comments?? HAH what are they reading? 99.9 dont leave comments, that leaves a total of 0 to 2% max. Dude you really should get off the meth, no-one is buying your crap. My boys at the newspapers are having a laugh at you.

I followed the link “Starlink” posted and had a read about the Mycoplasma. Very interesting, scarey stuff hey? My friend actually has mycoplasma in his blood. I am not surprised really because he has been to the USA over 40 times! But it don’t help his symptoms because he drinks the alcohol, which would make anyone feel crap if they were to live on it. One glass of the red wine these days and I am bit tipsy!

Michael – I like your experiment idea.

I have lived the past two years believing I had a disease called “Morgellons”. I can tell you that to think you have this disease will bring misery. To believe you don’t have this disease will bring enlightenment. Just my opinion here on my own experience. For me to move on and live I need to apply this.

I have said before I would not want to be a doctor for love nor money. Not these days anyway. What a position to be in. They are not God, I remember my sis telling me this. But they are human and can not know it all, and get sick just like I did. I have noticed that the Doctors in Australia are really under the pump from the Government, it is like a “point” system I think. Having to submit papers and documents etc, what a nightmare that would be. Inbetween trying to treat patients, have a life with their family etc.

After all my research and not being a doctor I have seen so much similiarity between “Morgellons” and other diseases. Like Michael said CFS many similiarities apart from the skin lesions.

I take the opinion that I am an individual and illness, viruses, and infections will effect me differently to someone else. I can not have the same thing as a man for example, just because of obvious reasons! ie. hormones. I read once that MCS Multiple Chemical Sensitivity will effect men and women very differently because of our hormones. For example it said that a woman would show more outward signs effecting her skin because she has ostrogen. For a man the outward signs would not be the same, may not get skin problems because they have testerone. But the damage is still happening on the inside. I found that really interesting when I read it, because I think it speaks the truth.

98% dont read the comments?? HAH what are they reading? 99.9 dont leave comments, that leaves a total of 0 to 2% max. Dude you really should get off the meth, no-one is buying your crap. My boys at the newspapers are having a laugh at you.

Both true. But you misunderstand “proof”. In science you have theories that fit observations. Some theories fit better than others. Some theories predict results better than others. There is no absolute proof, so you can always deny anything you like.

3) How does it help anyone? IT DOESNT

4) What is its purpose? TO THROW SMOKE AT THE SUBJECT……..pause……..

It’s purpose is to provide accurate information, and to analyse the claims and evidence surrounding the subject of Morgellons. It helps people by providing a rational counterpoint to the unscientific advocacy of the MRF and the NMO.

5)If it had one ounce of creditabilty , it might get some media attention. ITS NOT

Media attention is not my intent. It’s more to provide a resource for those investigating Morgellons, so they can form their own opinions on balanced information. To that end I’ve been contacted by numerous researchers and reporters, including the Associated Press, Nature, CNN, and several local media outlets. They talk to Mary, they talk to dermatologists and psychologists, and they talk to me. Then they write their articles.

And to you, Texastar, you and whomever “John” is, will now *give us an issue*, after making your comment #126. We’ll be beyond thrilled to *finally get to discuss any issue* that you can come up with, relating to “morgellons disease”. I’ve yet to see anyone, claiming to have it, not profess to have such a high level of intelliegence. It’s past time for you to show it to us all. Let’s debate it now. Don’t make me beg.

“I always feel that people should keep an open mind and I think there are scientific experiments, what we call evidence-based medicine, that can prove or disprove that an organism is causing this,” University of Texas Health Science Center at Houston dermatologist Dr. Stephen Tucker said.

Are you getting tired of reading all of Ricky’s crap and the non issues that go on and on. Maybe you are now understanding how sick bugs and adapted really are.

Smileykins Says:
September 23rd, 2006 at 1:21 pm
And to you, Texastar, you and whomever “John” is, will now *give us an issue*, after making your comment #126. We’ll be beyond thrilled to *finally get to discuss any issue* that you can come up with, relating to “morgellons disease”. I’ve yet to see anyone, claiming to have it, not profess to have such a high level of intelliegence. It’s past time for you to show it to us all. Let’s debate it now. Don’t make me beg.

Golly gee – the “Bird Flu” – Have read too many conflicting reports on the bird flu. I like to put my faith and trust in the WHO (World Health Organisation). Myself I have never had avian flu. Mind you my dad had the avian flu I think back in the 50′s, or whatever they called it then. He said he completely lost 3 weeks of his life, confined to bed the whole nine yards etc, could not really remember, but he said his mum really took care of him, and thank God he got through and came good.

All my family have bad viruses at the moment, so I am trying to stay clear given my own ailments. My folks put it down to the plane flight, after their holiday. I also mentioned that Queensland Australia has been known to be the best place in Aussie to live if you suffer severe allergies, and Melbourne is the worst place to live for this. So I said to them, since you both get allergies and had close to 3 weeks break from it, then hop on a plane to come back home, exposure to germs in an aircraft happens, and if you happen to be a little compromised in the immune system – catch a cold, and then allergies on top anything can happen.

Tall Cotton,
My heart hurts for your closed mind. Please read what you wrote.
No one knows what Morgellons is so how can you say no one has it.
You need to pray big time that CDC finds out fast.
I watched my child suffer for 6 months, unable to move, stuck in a bed with a horror disease.
For you or anyone to say this is DOP is a slap in his face. If you were in front of me right now i’d have a hard time restraining my anger.
HOW DARE YOU.
You sound very young and I know my beautiful son would tell me, mom he/she’s not worth it.
You just remember this pal.
If this horror disease ever hits you, deep in the night when you can’t sleep because of the itching, stinging, crawling feeling all over your skin.
And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them.
Just remember today pal when you slapped my 23 year old son in the face that I can’t forgive you.
It’s not that you find this disease to unreal to believe, had I heard of it before we got it, I’d find it very hard to believe.
That’s not enough for you. You are looking for ways to be ugly and unkind to your fellow man.
My son was only 23. He wanted so bad to live, love, work, play. HE’S DEAD, did that make your day?
posted by: Joshua’s mom, Sue L on 06.09.06 at 07:04 PM [permalink]

what can i say?
that is from classicalvalues websitehttp://www.classicalvalues.com
tall cotton it prooves u to be a scoundral
a cad and worse
i might be crazy dude…
of course i am…
i have morgellons
…what more do i need to say?

i posted it in its entirety so people could understand the typical high handed stand this dude so cruelly, unethically and spuriously takes
i condemn him and ask you put the link back on
it is relevant as it proves complicity, methodolgy and his sheer belligerent hatred

My point about the H5N1 virus, is that there are actually morgie people who’ve said that they have HAD IT!!!! There are also morgie people who’ve said that due to their having “morgellons disease” that they believe that they are immune to avian influenza. I wondered if anyone sees anything amiss with thinking like that.
Al, did you follow Sue, upon her arrival at lymebusters’ and read her posts as they unfolded there? Well, I did, and I encourage you to go there and do a search for them. It’s should be there, all in print, from day one. It was an amazing thing to see happening as it did, too.

No one knows what Morgellons is so how can you say no one has it.
You need to pray big time that CDC finds out fast.
I watched my child suffer for 6 months, unable to move, stuck in a bed with a horror disease.
For you or anyone to say this is DOP is a slap in his face. If you were in front of me right now i’d have a hard time restraining my anger.
HOW DARE YOU.
You sound very young and I know my beautiful son would tell me, mom he/she’s not worth it.
You just remember this pal.
If this horror disease ever hits you, deep in the night when you can’t sleep because of the itching, stinging, crawling feeling all over your skin.
And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them.
Just remember today pal when you slapped my 23 year old son in the face that I can’t forgive you.
It’s not that you find this disease to unreal to believe, had I heard of it before we got it, I’d find it very hard to believe.
That’s not enough for you. You are looking for ways to be ugly and unkind to your fellow man.
My son was only 23. He wanted so bad to live, love, work, play. HE’S DEAD, did that make your day?
posted by: Joshua’s mom, Sue L on 06.09.06 at 07:04 PM [permalink]

That last post is a spinner. First, did Al follow Sue upon her arrival at Lymebusters, and read her posts, I did, and looked. It shoulda been there, amazing as is it happened, too?? Does this really relate to Morgellons?

Since posts aren’t accepted on the link you provided for us, anymore Al, here was what I was planning to say there….

I wouldn’t be posting here if it weren’t for a disturbed lad named Al, who, in order to “defend” what he thinks is “morgellons disease” posted a link to this spot on morgellonswatch today.

More than several restless people who are in fear of someone endangering their disease, continuously reveal their illnesses outside of the usual “morgellons disease” forums.

I fail to see what the point that oldimeybioman is wanting to make, but didn’t, in his message of condolence to Sue L. It is terribly sad that she lost her son, and nobody can deny that it’s the greatest tragedy that a person could ever endure.

I read all of Sue’s posts from the day she first arrived with her story on Lymebusters, and told about her son’s cancerous brain tumor. At first, it wasn’t clear to everyone how old he was, and some thought that he was a small child.

She even told the type of specific tumor that he had, and I looked it up. As time unfolded, as is quite often the case on Lymebusters forum, Sue became more convinced that “morgellons disease” was what her son was dying of. She claimed that they both had it.

She even said, later on, near the end, that one of his nurses told her that “morgellon disease” was what he was succumbing to, and not the tumor. I know it would be a nearly impossible thing to have to cope with, and maybe that is the only way she can, somehow.

However, if a skin infection caused his demise, Sue knows what his medical records have in them. It was not “morgellons disease”, but maybe it was MRSA. Only she knows the truth, but she is unable to face it.

But is it right to allow people to spread fear that “morgellons disease”, which doesn’t even exist, is lethal? No, it is not.

People who think they have it, surely have something, though., but their minds are unable to accept the truth.

you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

No, those are YOUR symptoms of what YOU have got. Lots of other people have different symptoms. Some don’t itch. Some don’t have lesions.

Sue told everyone he had a brain tumor, then later she blamed his death on morgellons. That’s bullshit. She may find my statement to be a slap in the face to her son, but I find her statement a slap in the face to truth, and I personally don’t give a fuck wherther anyone likes it or not.

There is no M-catagory. If you want one designated, it would have to be a form of mental illness, moreso than anything else. You silly people don’t even have the same things wrong with you.

No you are incorrect. I do not have these symptoms. I and I will am sure you you dont have any family or friends that do. So how can you be such a Judge of this subject if you have no first hand experience at all?

No you are incorrect. I do not have these symptoms. I am sure you you dont have any family or friends that do have them. So how can you be such a judge of this subject if you have no first hand experience at all?

Norman, is your mother who seems to think she has “morgellons disease”, or do you and she both seem to have it? Just about anyone I know could say that they have it, but why on earth would they, when there are logical explanations for the things you described?

you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

Starlink Says:
September 23rd, 2006 at 9:26 pm
simple things like that

you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

Starlink Says:
September 23rd, 2006 at 9:26 pm
simple things like that

what can i say? i might be crazy dude…of course i am…i have morgellons what more do i need to say?

Al, but is that really the best that you can come up with, though? Because we regularly see the state of mind people are in, who think they have “morgellons disease”, yet not many will say what it is really like, and reveal their symptoms. They usually get mad at anyone asking. When I was on Lymebusters message board, newcomers would show up and people would start right in, telling them what to do, with their home remedies, and not question what the person’s symptoms were. Nobody ever seemed to care to, and people would join in. Can you just tell what it’s like, in specifics? Norman, would you mind attempting to do the same, please? Thank you.

Starlink, nothing is being deleted. Comment moderation has been enabled, so comments may take a while to show up. I will approve all comments, I’m just slowing down the pace a bit. This gives people a chance to better formulate their questions and responses. It already seems much more civilized.

heres another one
who ever is running this website is also deleting anything they may help all who have been infected and all who don’t even know they have been infected because your body is not allergic to the microorganisms, (hybrids–biologist who cross genes of two different species, and the lipids, lipids lay eggs and are used in many prescriptions that we use and makeup and shampoos,
there are liposomes and crystals that send signals look up liquid crystals and hydrogels, look up photosensitizing agents, you will find they are chemotherapy agents, retinoids are chem. agents and they are being used in many skin products. they cling to the helix of the dna and rna look of the patents 4877808 4603146 4423041 in a prescription cream called renova made by johnson johnson, telling women it will prevent wrinkles, they don’t tell you about the microorganis and that this cream contains chemo agents, that blurr your vision, cause dry eyes, dry mouth and dry mucous membranes and sores in your mouth as well as the propene a toxic gas. they don’t tell you that the benzoic acid in this product that causes aromatic rings cause leukemia and non hodgkins and lymphoma. they don’t tell you that lipids come from insects, silkmoths, and spiders as well as bird eggs. they created something biological and they can’t control it, they sold it to millions around the world and they created a biological organism that spins the films that are on these patients and then they will tell you that you have dry eyes and it makes you see cobwebs called floaters, the chemicals and gases cause neuro peripheal problems likea add and odd, and brain fog, they won’t tell you that the chemicals partition the membranes and allowing a host of bacteria and other infestations to come into the open pores and sores. you probable won’t get to read this because whose ever website it belongs to will delete this like it did the other two blogs. they don’t won’t you to know the truth. the fda and cdc have had knowledge for at least 5 yrs of patients complaints and refused to investigate and now the patents show what they did, and how they used innocent people as human guinea pigs and created a creature that travels in toxic gases and thrives on the sun lights and anything electrical for strength. Look up nano tech and nano tunneling as these chemical were once nano scale until a stupid physician gave a predizone shot that nade it multiply and mutate. Look up self assembly bacteria, crystals, lipids. Look up micelles and head groups and tails, spinning in hydrogen vapors. look up spin electric and and dieelectri and you will not believe how far science has gone, look chimera, look up photomask.
before you make comments and belittle people who know they are sick and know they are being suffocated by a horrible organism, does it take the plaque and for you to be effected or a family member before you wise up and stop the immature and stupid remarks going on on this website. I printed out my last remarks, before this website deleted them, proving this site was created only for wise remarks and to make fun of people who are suffering, the sad day will come when it is too late and your stupid remarks and the stupidity of this website prevented a cure from being developed because physicians and pharmaceutical corp. prevented people from being dx. because they created it. No doctor gets rich from a healthy pt. st lukes knew what this product did, they knew all the side effects from the chemicals in this product. as i called each drug and chemical up and have 2 ft. of documentation on each chemical, and got alot of them from their website such as accutane, yet their dermatologist state on tv it is delusional.
I thnik grown people know if something is moving on them, especially a person who never suffered before and wasn’t someone who went to the doctors every time they didn’t feel well. ignorance is bliss but for how long. physicians thought they were safe by standing back away from their pts.,
they didn’t know how infectious this was. photos will show you if you are infected, the camera picks up the crystals and metals used and the optic fibers. Prof photographer states put negaives on a film projector and it will show you what you have covering you. call mr keith hilley from garden state pest control, 128 Claire crt. turnersville nj 08012, he seen them, he took samples to a lab, but they won’t let him report the results, he’s too scare to talk, and will allow innocent children and people and animals to suffer, because he is too scared to talk. I will print this before it gets deleted so later you will all know that this is not about the truth or about the search for a cure or is there really an epidemic out?

you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

It sounds to me like you are trying to put a curse on me, Starlink. It won’t work, I assure you.

Starlink said…

You are laughing in the face of disaster

No, Starlink, I’m not laughing, not at your medical problems. Sometimes it’s hard not to laugh at your lack of logic and common sense, that’s all. But, if I were, how would it be “in the face of disaster”? I have absolutely NO FEAR of Morgellons, and I sure don’t have any of you.

When I was on Lymebusters message board, newcomers would show up and people would start right in, telling them what to do, with their home remedies, and not question what the person’s symptoms were. Nobody ever seemed to care to, and people

We dont care about the Lymebusters.
are you seeing the words I am typing?

Norman, now listen here. What is it PRECISELY that you are trying to warn us all about, and shaming us over? Damn, mister. “Laughing in the face of danger”? “Get inside their minds”?

*Tell us*

I’d had delusional parasitosis for a couple of months back in 2002, and I’ll be darned if I wasn’t inside the same minds as quite a few people who think that they have “morgellons disease”. Some of these people said that I had “morgellons disease” and that I still have it, only thinking that I’d gotten over it, and that the fibers only went inside. They said they’re consuming me internally which is worse than knowing about it. That idea varied, though, depending on which person of expertise was speaking. You know, you’re not supposed to ever recover from “their disease”.

I couldn’t openly speak my mind on Lymebusters and say that what I’d had was what so many of them said they were diagnosed with, which is no secret, and was DOP. I didn’t even know what DOP was until I looked it up, after seeing people discussing it there, in denial. I didn’t get diagnosed with it, though, I was too sick by then to get help, after two visits to an ER, and I was stuck at home with it after my condition progressed into it. I had dehydration after my heat pump went out, resulting in a severe case of heat rash, heat exhaustion, progressing into hallucinations and the development of kidney stones that I passed.

Tall Cotton
a curse?
no the poor guy is describing his symptoms, man….where are you?
I understand that you would think that,considering the vitriol you pour forth.
No, TC all you do is curse yourself
…looking right through you…

First though, I have FEAR….trying to get over it. Will go to the :Morgellons Lie” Blog Site if I need to talk. What do you think Michael?

Al – your post – is that real..it is isn’t it… I have to make some decisions. My parents are getting a dog, my mum is using my energy up trying to make a decision because the pup is 14 weeks, she thinks it is too old maybe. She wants ME to look into this. I said ring the vet, but then I can hardly BREATH and need to get off the phone.

My POINT HERE: I do not know what I actually have, I think we ALL agree on THIS. I do not want to infect a little puppy if what I have is CONTAGIOUS. Michael I call upon your wisdom..thank you.

and from ole smilykins.. read on and wonder….
Oh, and about the shooting hair-like fibers, they also shot back into my body a lot of the time. They were black, and the same consistency as horse hair. They were like snakes, strong as could be. They seemed to be very much alive. I couldn’t hold onto them, but I didn’t want to let them go either.”

“I knew,” Smileykins sighed, “like I knew about all of it, that it wasn’t normal, but I ascertained with the only form of reasoning available to me, that it was just more of the debris that had been trapped in my skin. It had remained embedded, I thought, and hidden from sight. And it was electrically charged

I was pretty well flipped when I was ill, but not anywhere near that level, Al. I’m sorry, but you need help. I had something of an advantage working for me. I was alone. In the back of my mind I recall stumbling upon some very strange comments on a message board back then. I don’t even know what message board it was, but I knew it was too weird at the time, and I needed to move away from it. Oh, I was in hot pursuit, don’t think I wasn’t. Yeah, I had to find out what had happened to me, and it consumed me, day and night.

Running with a crowd of people all led into believing in “morgellons disease” is hazardous to your health. There are patient pamphlets a person who uses Renova can request from a pharmacist if it isn’t included. Nobody twisted anyone’s arm and made them use it, or anything else, but it definitely hasn’t given “morgellons disease” to anyone. Somebody stated, on here, that they’d had melanoma, but they didn’t mention what stage it was in. It is very likely that the person doesn’t even have a clue about it, from the way they spoke. Also, Renova is to be kept away from mucous membranes. Patients have to be wise, Al, and able to look out for themselves. It is beyond sad that not everyone can.

Norman, posting an excerpt from Sue L.’s old comment that Al used, has been misleading, and appeared as though you were stating it to be what you were going through.

Also, Al, making fun of people and calling them names, saying they’re liars, cursing, and showing yourself to be very uncivilized, is actually done by who, exactly?

No one knows what Morgellons is so how can you say no one has it.
You need to pray big time that CDC finds out fast.
I watched my child suffer for 6 months, unable to move, stuck in a bed with a horror disease.
For you or anyone to say this is DOP is a slap in his face. If you were in front of me right now i’d have a hard time restraining my anger.
HOW DARE YOU.
You sound very young and I know my beautiful son would tell me, mom he/she’s not worth it.
You just remember this pal.
If this horror disease ever hits you, deep in the night when you can’t sleep because of the itching, stinging, crawling feeling all over your skin.
And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them.
Just remember today pal when you slapped my 23 year old son in the face that I can’t forgive you.
It’s not that you find this disease to unreal to believe, had I heard of it before we got it, I’d find it very hard to believe.
That’s not enough for you. You are looking for ways to be ugly and unkind to your fellow man.
My son was only 23. He wanted so bad to live, love, work, play. HE’S DEAD, did that make your day?
posted by: Joshua’s mom, Sue L on 06.09.06 at 07:04 PM [permalink]

Tallcotton said: No, Starlink, I’m not laughing, not at your medical problems. Sometimes it’s hard not to laugh at your lack of logic and common sense, that’s all. But, if I were, how would it be “in the face of disaster”? I have absolutely NO FEAR of Morgellons, and I sure don’t have any of you.

Tall Cotton

Well I am not going to be frightened to speak up here: “I” have FEAR of “Morgellons”..

The question BEING what does ONE do about IT??? This is pushing one to insanity…

This is a good article, and doesn’t sound like much fun for either party, about a doctor’s decision to invoke therapeutic privilege, under the guide of the AMA Code of Medical Ethics, as an exercise of clinical and ethical judgment concerning his patient.

Doctor: Though I still wonder whether I did the right thing, I console myself in the fact that she made it relatively easy to withhold her diagnosis. After all, I certainly didn’t want her to go postal.

Starlink says: No one knows what Morgellons is so how can you say no one has it.

I disagree. Did you read the post for which you are answering? Hundreds of doctors know what “Morgellons” is– and it’s not anything new. It’s DOP. Is that a slap in the face? Perhaps in your perspective. But say, 30 doctors tell me I have breast cancer, and I say no, I have an alien living in my breast. Then, I die trying to self-medicate this alien out of my breast. Well, what killed me?

Why is this so difficult?

30 doctors tell a patient they have DOP, or eczema, or Lyme’s disease. But no, they think that they are suffering from some “new” disease. Then they die from self-medicating the “Morgellons” out of them. Well, what killed them?

Because of the delusion. People with delusions don’t know they have delusions. It’s unfortunate, and deadly.

Ha, I love psuedo-science. It reminds me of how Skytroll tried to tell me mycology was the study of algae.

Al says: “lipids, lipids lay eggs and are used in many prescriptions that we use and makeup and shampoos”

Lipids are molecules. They are chains of carbon and hydrogen. They do not lay eggs.

It’s frankly annoying, when a “Morgellons sufferer” throws psuedo-science out as “proof” of their condition. The perpetrator of the psuedo-science can’t be bothered to go to an encyclopedia (even wikipedia would have been helpful) and see what they’re saying is ridiculous.

A hydrocarbon “laying eggs.” Seriously. That’s like saying a water molecule is “laying eggs.”

jeeezelouise Says:
September 24th, 2006 at 11:00 am
SarahC, while the Shiavo case was quite wrenching, I’m not sure what it has to do with “Morgellons”?

I am not sure either what the article has to do with “Morgellons”. I just felt a similar connection with the story. I am just using the process of elmination, to get to where I need to be.

Because “Morgellons” is not an actual disease in any medical text book, I am aware I do not have this.

What I do know is that my skin symptoms have always been very real and very visible for any doctor to see, if they took the time to look.

Post #193 is yet again another ‘story’ which I very much relate too.

Why? Because that is how I felt from my treating physician. I felt he was treating me for DOP. When many other people around me can clearly see the strange things happening to my skin, it definitely confirms what I already new. I wasn’t DOP. I was very sick, and my skin was very sick, and doing really strange things I had never seen before.

I had never heard of DOP until I really got into my research and discovered the MRF website. I was really taken back when reading about DOP. I new very well the description of DOP was definitely not me. Especially after I had worked in Mental Health years ago, I had never come across this type of diagnosis before.

I just know something is very wrong, and so does everyone around me. I feel an injustice has been done against myself.

Comment #177, was to Norman/Starlink’s comment in #166. To respond to his #176, “we” (again, whoever that is), that he says, “don’t care about” what I remarked concerning a common morgie practice on lymebusters, isn’t a surprise. That’s pretty darned dangerous, though, and unhealthy, to tell people what to do (and they seem to usually do it), when nobody knows who has what, and they choose taking everything for granted. Nobody seems to care, whatsoever, that they don’t know, and they don’t even want to know.

That ain’t normal….none of it. Just about everything I ever read there was about stuff guaranteed to exacerbate what was already described as being a miserable state. There are a lot of things that can cause a person’s skin to be in miserable state, and most of their practices were based on something more than ignorance. For a bunch of people telling us how highly intelligent they are all of the time, then, why is it failing to come across? I’m only meaning, *think about that for yourselves*, because something is blocking it, apparently, and nobody realizes it’s apparent to others, and a matter of real concern to us.

Norm, aside from the confusion that we all got from your posting an excerpt from Sue L.’s comments, more than once, you’ve also posted to TC, too, and where it says, “Now look what you wrote”, from Sue L., it, also, at first, is misleading to read. You as good as accused Michael of deleting your comment #96, with a link, earlier,too.

Comment #186 was in response to Al’s #174. Al, can you, or anyone you know of, relate to the excerpt in your comment #185, from my DOP experience? What is it that you’re wondering about? I’m more than open to discuss it with you. Everyone is different, and I can never stress that enough. My experience differed from many of the morgie people that I know, though, because I took care of my skin, and never once looked upon it as that I had anything that needed to be killed. I assume, since you’re wondering, that you want to discuss this, so I’ll go now and look on our blog. Thanks, and hang in there.

“In an ideal reaction the waste would be only water and carbon dioxide but because the coal is not pure or clean there are often many toxic byproducts such as mercury and arsenic. Also, incomplete combustion causes the production of carbon monoxide which is toxic because it will bind with hemoglobin more readily than oxygen, so if it is breathed in, oxygen can not be absorbed, causing suffocation. Incomplete combustion also has a byproduct of carbon in the form of soot.”

Dr. Norman Levine, Dermatolgy professor at University of Arizona is playing a dangerous game if he is treating any patients with Pimozide, a drug that is FDA approved ONLY for the treatment of severe cases of Tourettes Syndrome that have not responded to other, less dangerous treatments. Its use as a treatment for anything else is off label and should only be prescribed by a highly trained specialist- in this case a psychopharmecologist. Pimozide is NOT an antipsychotic and is not approved for the treatment of schizophrenia. And in fact, it has a laundry list of side effects that include quite a few that are the same as the symptoms of Morgellon’s. If the patient is believed to be suffering from true psychosis which would involve hallucinations, a psychiatrist would most likely treat them with Zyprexa or one of the other more recent antipsychotics.

This is another perfect example of doctor’s stepping out side their area of training and putting their patients’ health at risk.

(btw, my dermatologist disagreed with Dr. Levine. who seems overconfident that he has the only correct diagnosis. My dermatologist said that the sores on my skin were due to the presence of toxic mold in my apartment and that I should live in another environment for two weeks and then we would see if the condition had improved. It had to a great extent)

“I always feel that people should keep an open mind and I think there are scientific experiments, what we call evidence-based medicine, that can prove or disprove that an organism is causing this,” University of Texas Health Science Center at Houston dermatologist Dr. Stephen Tucker said.

“There really is no scientific basis at this point to believe that [Morgellons] is real,” says Stephen Stone, president of the American Academy of Dermatology.

These strike me as the two best quotes in the initial post. The necessary scientific experiments have not yet been to reach a verdict on Morgellons, and until they have been people should keep an open mind.

And even if it does exist as an actual disease, that in no way means that everyone who is currently claiming to have it actually does.

more smilykins…..
“…One of the symptoms of Morgellons is said to be fibers coming out of the skin,” she said, “particularly from skin lesions. I’ve had fibers all my life,” Smileykins continued, “and I’ve said so, on the Morgellons message boards. Having had them all my life, I assumed it was normal for everyone….”

more smilykins
an inspirational tale
of a cat taming career {how many claws, exactly are we talking here?
c’mon smilykins…
smile

…..” Ha! Little did I realize why, until I recently remembered about the heat pump. My autoimmune problem was in high gear, because of a cat claw puncture wound, too, with the tip of the claw broken off inside. I always have to wait for them to work themselves out. I was sick enough, from that, with the usual swollen lymph glands. I also had a seborrheic eye condition, called blepharitis, that flared up at that time. The meibomian glands in my eyes were also clogged, no doubt from dehydration, and I had always had to use lubricating eye drops, back before then. I got a hematoma in my left eye then too.”
“My sinuses were a mess,” she continued. “I had a very bad sinus infection during all this. It’s apparent now that my kidneys were not functioning properly, because of dehydration, and my body could not efficiently eliminate the rapidly building toxins through my blocked, and clogged up, sweat glands, and any sweat I did produce became trapped underneath my epidermis. For a long time, looking back on the experience, I’d thought I’d surely had a blistering bacterial skin disease of some sort. It was just something that began with miliaria, dehydration, kidney stones, and heat exhaustion.”
“The only dog I had then, was seemingly as sick as me, too, and it was from the extreme heat, as well. At one point, both of us were panting and turning blue together. We were so sick, and in need of assistance. He had patches of skin that came off from his underside, as well, and he was spewing things out from there, just like I was. He recovered in several weeks, with me doing all that I could to help him, force feeding him water, food, and vitamins, and cleaning his sores and treating them, the same as I did mine.”
“I was very, very ill, and it’s difficult to recall the exact sequence of events, but anyway,” she continued, “there was a point that I had such extreme burning inside of me, and I noticed very enlarged veins in my arms and hands. This was an autoimmune condition, called vasculitis, an inflammation of blood vessels. Something moved through my veins. It was an extremely painful and freaky experience. I’d thought, sick as I was at the time, that this had to be parasites. I watched as something moved through a vein in my right arm, and then, my left, and if I placed a finger in the way, to block its path, it stopped, backed up, and entered into an adjacent vein. It was actually only a blood clot. I know, in hindsight, because of the lab readings from that time period.”
“I developed some kind of subcutaneous movement outside of my circulatory network as well, and watched it tunnel its way out, with the end results of open sores that exuded large amounts of fibers and trapped debris. Fluid came out from these migrating ‘lesions’, and it ate holes in my clothes and anything it came into contact with. My fingernails were ripped up and turned into shreds as fluid oozed out from underneath them. A lot of various colored granules and fibers, and other types of debris emerged and came out of my body. Hair-like fibers shot out of me at random. Material also oozed out of my skin and dried to form new skin-like layers, but I didn’t think much about that…..”

It’s so astonishing to be told, so often, by those who believe in “morgellons disease”, that nothing is known about delusional parasitosis, and that it’s never been adequately studied. Maybe saying it to each other gives it validity. Choosing to keep following false beliefs, no matter how they got planted, rather than the truth, is up to them, though. The bad part is, I’m sure it can’t be helped in way too many cases. Only someone who wants helps, gets help, but everyone should always learn about any health problems that they have, certainly when a doctor diagnoses it, always, no matter what the condition is. Skin problems really aren’t too complicated to diagnose, with it being so readily visible on the outside of our bodies. Here, alone, are close to 100 references on DOP.

There are a lot of lawsuits concerning Zyprexa, though, but it all still goes back to patient education, and being responsible for working as a team with health care providers. I hope you continue to improve Robert W.

Pimozide can also treat conditions that may cause you to hear or see things that others do not. [...] An antipsychotic, Pimozide (Orap) posesses neuroleptic properties that have been found to be useful in the management of chronic schizophrenic patients

Pimozide ( Orap ) is an antipsychotic drug of high-potency. Used in the treatment of psychotic thinking and hallucinations. Pimozide ( Orap ) is not the drug of first choice, because of some serious risk. Given only to people that do not responded to other medicines.

The article state: “they responded well to treatment, including a drug called Pimozide“. It does not seem like he’s using it a lot, just giving it as an example. I’m sure he’s aware of the contraindications.

Find me any drug of significance that does not have quite a few side effects that are the same as the symptoms of Morgellons. That’s part of the problem. See table 4 in the following article, which lists the fifty most common.

…..”Closed sores eventually developed from where the migrating lesions had been, and I had been treating myself with antibiotic, and zinc oxide, ointment, after showering with shampoo for seborrhea and psoriasis. In fact, I’d suspected I may have had a form of psoriasis back then. The sores eventually filled with fluid and exploded. As the fluid that bursted forth made contact with anything, as usual, it ate holes into it. Next, as I watched in pain and disbelief, although it was fascinating to witness, bugs, that looked like sweat bees, crawled out of the sores, leaving behind holes in my arms and legs from where they had been. As each one dried off and took flight, I killed them after they landed on the wall.”

“After that phase a patch of skin exploded off of me for the first time,” Smileykins said, “leaving a puddle in my carpet. I went to clean up the material immediately, and there were what looked like fungus gnats in the fluid. It was real waxy. It didn’t eat into anything, like the fluid that popped out of the sores. But my skin developed a leather-like, really an almost cellophane-like texture, and with so much fluid trapped beneath its surface, it literally began exploding off of my body. I felt like one giant exposed nerve. The slightest movement of air caused me to cringe with pain. I can’t even begin to describe the extreme level of that sensitivity. My skin came off in sheets, and I watched in shock and awe as the escaping goo crept around on my floors and countertops like some sort of larger than life amoeba. I wasn’t obsessed with my skin, but the stuff happening, as a result of whatever was going on with it, was beyond fascination. I knew from my life-long sensitivities to leave my skin alone, but the top layer eventually ended up being gone from head to toe. I just took as much care of it as I could, without adding to the misery.”

“Were you concerned that this skin was creeping around the house in blobs?” I asked.

“Oh yeah! Definitely!” she answered. “And I expelled a lot more stuff from my body after those top layers of skin blasted off. I was like a giant, human blister. I didn’t know what the hell was wrong, but I knew that what was happening was not normal. My hair even came alive, dancing around on my head, and it changed texture for several days, before returning to normal. I just watched everything in amazement, as the puddles of gelatinous fluid …..”

to clarify a point, if i may
nobody is claiming DOP doesn’t exist as a form of delusion…
however the nuero toxins formed by the biota of this disease
cause significant mental impairment, which in turn create similarities to mental illness, hence the diagnostic difficulties, the negative lab reports and the veil of medical establishment arrogance which strongly prevails
over the centuries pathogens have evaded the physicians cures by mimicing other disorders
morgellons first described 300 years ago by sir thomas browne….
in france

I thought I would bring some links to the front. “Delusions Of Parasitosis”. I just grabbed a few randomly which are grouped together at the bottom. The first link is slightly different to all the others.

The difference with this first link on DOP is the mention of the word “Internet”. See if you can spot the problem.

Morgellons said “I’ve been contacted by numerous researchers and reporters, including the Associated Press, Nature, CNN, and several local media outlets. They talk to Mary, they talk to dermatologists and psychologists, and they talk to me.”

There is another delusion. Its called delusions of grandier or DOG and if anyone is having delisions its Morg/Tall/SmileyTall. The guy that writes with the same angle all the time, and conveniently one of these multiple personalities is always available with a wise crack.

Why would CNN care what a retired programmer with no medical background and has no first hand knowledge about this disease think about anything. Care to share all the media inquiries? We would like to how serious they really are about your knowledge (of how to use Google)

Gosh, Al, thank you!! Now, let’s talk about this. What do you want to tell us about why you think that having fibers, in, or on, your skin “isn’t” normal? Anybody who wants to read about Tall Cotton and me, have probably already done it, but I sure appreciate your help in getting this out to others.

Exposure to toxic chemicals (lead, toluene, carbon monoxide, among many others) can cause brain damage, depending on the level of exposure and the duration of the exposure. I’ve been ill from carbon monoxide exposure quite a few times in the distant past, but going outside for fresh air and opening windows was all that was required. If anyone has lost consciousness from acute carbon monoxide poisoning, they would have certainly had to have been treated and evaluated at the time. If brain injury is currently suspect, a doctor would, more than likely, readily comply with a brain scan to check for it. Everyone should have Advanced Directives, in the form of a Living Will and/or a designated Medical Power of Attorney, particularly if there are current concerns. Any patient concerns should be expressed to the appropriate health care provider.

Robert W Sez: These strike me as the two best quotes in the initial post. The necessary scientific experiments have not yet been to reach a verdict on Morgellons, and until they have been people should keep an open mind.

I totally agree. In the same vein, every single person who has blatant symptoms of schizophrenia should have every possible facet of their hallucinations and delusions tested, before they are diagnosed. Perhaps them seeing people are really that they have ESP, and ESP must be first proven or disproven? Or that the “government is watching them,” I agree with you, ever step should be taken to investigate every single person in the government, no matter what the cost, to prove that truly no one is watching them. Or what, say, voices in someone’s mind telling them to kill others? Certainly we should immediately donate billions of dollars to NASA to prove that it’s not aliens in their heads, and first, we must prove or disprove aliens (all the while, keeping an open mind!)

Why would CNN care what a retired programmer with no medical background and has no first hand knowledge about this disease think about anything. Care to share all the media inquiries? We would like to how serious they really are about your knowledge (of how to use Google)
[...]
How would they contact other than this website? Hmmmm. Curious indeed.

They are interested because of the contents of the blog, and possibly because of the large number of comments it elicits from people like you. They use email. Here’s one example:

One of the most popular Web sites on the disease is Morgellons Watch, a blog dedicated to poking holes in every known theory on the disease. The blog operator would only agree to an interview via e-mail and would only identify himself as Michael from Los Angeles. Leitao, the director of the Morgellons Research Foundation, suspects that Michael is a dermatologist.

I wrote a book about this with effective treatments and case histories. Seehttp://www.beatricebooks.com However, I would like to speak with you about your
condition to see if there are differences trans-continental. I have been
called from New Zealand, Canada, all across USA, Mexico, China, Germany,
England. I have developed effective treatments which lead to cure in early
cases, maybe in more advanced, but harder. Call me USA 954.427.5810

> Dear Dr Schwartz, My name is Gillian Penkethman, I live in
> Melbourne Australia. I have Morgellons Disease and I am really
> desperate for help, I mean desperate. Can you please help me, or
> contact someone who can help me please. Regards Gillian 001 61 3
> 9879 1145
——- End of Original Message ——-

Whaaa!!! My credibilty has been shattered into smithereens, now, by Al. Prior to that, Sarach did it (again). Oh, woe is me. Well, come on now, break it down, for me, Al. (Sarach doesn’t have to, because she explained after she called TC and me liars, again, that she didn’t want me to reply back to her, because she just had to put “her” lie up about me, for others to see. That was totally cool with me, knowing where she’s coming from.) I’d like to know where you’re coming from, Al (if you can do it), like I said, so can you break-it-down for me? I’ll try giving you a boost. Are you afraid of facing your own truth, using me as a example, in one of two ways:

1. You think I had DOP, but you have “morgellons disease”

or….

2. You think that I had “morgellons disease” and that I still do

You may go to TC’s & my blog, and we’ll talk it out. Thank you, because I appreciate this opportunity.

No, Norman, delusions of grandeur is more along the lines of thinking that you’ve been important enough to be singled out by a large corporation, or however it is that many morgies think, like, “the chosen few”, as well as demanding immediate, direct, attention from the same. We’re just regular people who you’ve chosen to bring yourselves to, and we’re trying to understand you. That’s all. You people came here with interference, and we’re doing our best to learn about you.

The board also asked Dr. Schwartz to voluntarily reframe from prescribing narcotics until the board has made a decision. The board is concerned about his failure to provide medical records upon request, failure to maintain complete patient medical records, injudicious prescribing, prescribing narcotic drugs for other than accepted therapeutic purposes, misrepresentation and fraud in his response to the board

Michael, the FDA has not approved Pimozide as an antipsychotic nor for the treatment of schizophrenia. It has only been approved for the treatment of tourettes. Use of the drug for any purpose other than the treatment of tourettes is by definition “off label”, that doesn’t mean in some people it might not help manage symptoms of an illness, but it does mean it’s potentially a risky manuveur. The National Institute of Mental Health has an extensive list of both approved and off label medications for treatment of mental health conditions, including schizophrenia and pther conditions with psychotic features.

“Find me any drug of significance that does not have quite a few side effects that are the same as the symptoms of Morgellons. That’s part of the problem. See table 4 in the following article, which lists the fifty most common.

This list of the fifty most common drugs is from 1998, and is radically different than the list of the top 300 prescribed drugs in 2005, the most recent year for which data is available. Note that Pimozide does not make this list of the top 300, but Abilify, Zyprexa, Risperdal, and Seroquel- each of which is an antipsychotic do.

I can find you more than one drug of significance that does not share quite a few of the side effects of Morgellon’s . Starting with the most commonly prescribed drug in the US, Hydrocodone/Acetaminophen, which shares only the rare side effects of blurred vision and dizziness, but not the dermatalogical symptoms that seem to be the most frequent complaint of the people who believe that they have Morgellon’s. Another would be Ambien, the most commonly prescribed sleeping pill in the country, which shares only the symptom of amnesia, and that is only applicable when people take the medication and then stay awake for several hours. Lipitor, the second most commonly prescribed drug in the US in rare cases causes muscle weakness or tenderness. Amoxicillan, the third most prescribed drug shares none of the symptons of Morgellons in it’s side effects. Many more commonly prescribed drugs can be added to this list. (Aside- Nancy Hinkle, who wrote the article referred to in the link http://www.ent.uga.edu/publications/delusory.pdf wrote the article while she was on staff at a school of verterinary medicine. The link says that she is now an entemologist at the University of Georgia, which also has a school of veterinary medicine although it does not make clear if the entemology group that she is a part of is part of that school or another division of UGA.”

Real Mental Health, one source that you cite to support the assertion that Pimozide is well known for its use as an antipsychotic has no affilliation nor staff members who are doctors and is an advertising-revenue driven enterprise based out of Miami.

It has some information about various mental illnesses but doesn’t cite its sources. The DSM-IV Made Easy that the site does use frequently is NOT a publication of the American Psychiatric Association as is the Diagnostic and Statistical Manual Text Revision-IV (aka DSM TR IV)

TEVA Pharmecuticals that manufactures the drug doesn’t mention it’s use for the treatment of anything other than Tourette’s but I suspect that it would be illegal for them to do so since that’s all the FDA has approved it for in this country.

Finally, forgive me my extreme skepticism at the notion that doctors are well versed in the contraindications of medications outside their areas of specialty. I’ve personally known too many people that have been written scripts (in no way Morgellons related) for drugs not appropriate for their conditions, and seen the unfortunate impact these have had on their health.

Oooops, I just saw S Bione-Dunn’s witty cooment on the diagnosis of all sorts of things. FYI, Very strict diagnostic criteria exist for all mental illnesses and are published in the DSM TR -IV by the American Psychiatric Association. And, no, it doesn’t list Morgellon’s because at this point we don’t know if it’s a mental illness, a disease, or nothing at all.

Michael – My friend just phoned my lady doctor and left a message with the Receptionist. Asking if she could phone Mr Dan Rutz of the CDC (Centres for Disease Control & Prevention) Atlanta Georgia, USA, on my behalf. Saying: Gillian has symptoms of Morgellons Disease which is currently under unvestigation by the CDC.

SarachConnor, last I heard, the CDC was just looking at patient reports in California. I think their “hotline” is really just a way of deferring enquiries until they have done their initial epidemiological report. Having your family call it will not help at this stage. Wait until they actually say something first.

RobertW, okay, so maybe the prescribing of Pimozide is a little dodgy. But the facts are that doctors often do prescribe drugs for off-label usage, and Pimozide is used as an antipsychotic, despite not being approved as such by the FDA. This happens:

Relman and Fajardo continue to receive occasional calls from people with delusions of parasitosis and are still struck by their imaginations. “One patient believed his parasites were secreting an amber-colored oily substance that coated his skin, and seeped into his washer and dryer and gummed them up,” Relman says. “And he said it was all over the walls of his home.” Relman just keeps referring these patients to other doctors who can better treat them. “It’s funny, but many of these patients’ stories are very similar,” he says. “Perhaps these patients are acting on fears we all have. Fear of parasites may be a deep-seated image that we all carry.”

My skin came off in sheets, and I watched in shock and awe as the escaping goo crept around on my floors and countertops like some sort of larger than life amoeba. I wasn’t obsessed with my skin, but the stuff happening, as a result of whatever was going on with it, was beyond fascination.

This was ridiculous, but that stuff grew in my kitchen sink, and I had to dismantle the plumbing to get it out.”

“Well, it’s no wonder, after looking back and realizing that it was my own epidermis and all of its components, and the trapped fluids that were built up underneath it” she said, “and as dehydrated as that layer of skin was, no wonder, when it got down into the drain, the water plumped it up and made it expand into some kind of growing goo that clogged the plumbing!”

Can’t you tell I was flipped-out sick, then, Al, and things were being misinterpretted by me, at the time? I’m lucky I got over it, but it was an extremely difficult period. Nobody is the same, and there are a lot of causes for it. I’d had no outside influences, and was solely on my own to make sense of things. I wish that everyone could make their way out of what they’re going through and regain better health.

I have posted on this blog about some morgie people too. Here’s one…

Re: Body being preserved by a film?

« Reply #2 on Apr 26, 2006, 12:50am » [Quote]

NO. I DONT THINK ITS DUMB AT ALL. THERE IS A COATING ON MY SKIN. i WAS SO TERRIFIED THE FIRST TIME I REALIZED THAT THESE EVIL CREATURES WERE UNDER COMPLETLY NORMAL LOOKING SKIN. DISGUSTING THEN AS I BEGAN RUBBING THEM FROM MY FACE I NOTICED A RIPPING SOUND AROUND MY HAIRLINE.LIKE THEY WEAVED TOGETHER LIKE A WEB. AND CREEPY TO IS THAT IT WAS THE EXACT AREAS THAT TAM TAM MENTIOND FROM EARS TO THE BRIDGE OF THE NOSE I THINK. AFTER THIS UNHAPPY REVELATION I DECIDED THAT THEY MUST BE TRYING TO MAKE ME THEIR COCOON. ALL COVERED WITH A NICE PROTECTIVE LAYER OF SLIME. I CANT BELEIVE I WALK AROUND WITH THIS KNOWLEDGE WITHOUT COMPLETLY LOSING MY MIND.

I kept things together for myself a little bit better, not having anyone to share those two months with with, Al. The lie of “morgellons” ensnares people.

THE SECOND SET: with the cellphoneÂ will start with No Subject and then go from
Pic A- ?

(These were just before I spoke to Dr. George Schwartz and I went to UCSD
Medical Center, who wouldn’t see me again)

I used Grapefruitseed Extract and smothered my skin.Â I was so furious that I
was also scrubbing my skin with the Firm Bristle Brush.

THE LAST SET:Â Were numbered 1-?

I used the Grapefruitseed Extract again, and it brings them out again, only
smaller.

ALSO AT THE END OF THE LAST SET:Â I had a hard Knot under my skin, on left
forearm.Â I don’t recommend this, but I Injected a concoction of Ivermectin,
Peppermint, Oregano Oils, andÂ Grapefruitseed Extract into the knot, Just a
little bit as could tolerate.

These photo’s distinctly show organisms surfacing.Â They were at a younger stage
of growth than the First Set on the Websight Link above.

If some don’t look that Impressive, at least take the time to continue to look
at all of them.

Why do Morgies think that they can’t have DOP if their symptoms are real. That simply not so. Every single symptom that you think you are experiencing, may in fact be what is happening. And you can, and Morgies are still DOP. For the umpteenth time, DOP does not necessarily mean that a person is “seeing things” that aren’t there. It means that they are believing irrationally.

I’ll agree that it doesn’t seem fair, but even if Morgellons turns out to be a real disease with the symptoms that the people say they are experiencing, they are still DOP. How could that be? I’ll tell you exactly how it could be, and exactly how it is.

There is no reasons to believe that Morgellons is a distinct disease. You won’t agree, if you are a Morgie. But, it’s a fact. There are absolutely NO reasons to hold that belief. Persons are not supposed to cling to that belief UNTIL there is a reason to. They do cling to that belief, against common sense and reason, and it’s this false belief that makes them all DOP.

Do you mean to tell me that I am still DOP even if it turns out that everything I believe now is true. Yes I do!!! Because logical reasons for this belief has not been presented by anyone. It’s the clinging without reaason that makes you DOP.

Now some people are worse than others, and some Morgies also hallucinate. That can make the situation worse, and make you what could be described as double DOP. That puts a person into an additional DOP catagory. DOP is simply NOT what most of you think it is.

Now, before you start saying that I said Morgellons might be a disease. That is not what I said. It is not a disease. There is NO chance of it, not even one in 100 zillion. But I used the analogy just so you could see that it isn’t a matter of being right or being wrong. It’s a matter of clinging to an idea without reason.

I can’t remember who I emailed over the past couple of days, but I told them that I was having the voices in my head. They won’t go away. I have not bathed since Saturday night. I am too scared to do anything, I am a quivering mess. I don’t blame you Al because I do not know YOUR story. I don’t want to inflict harm on anyone.

Al – believe me Smilykins and this blog site helped me to where I am, you must believe me, I had NO ONE to turn to. I have been so so ALONE, my heart told me that this was the only way I could help bring the mystery of “Morgellons” to fruition.

I reached within myself just one more time and put on my silver charm bracelet which my late beloved Godmother gave me when I was born. One of the charms on this bracelet, is a beautiful round silve pendant with an inscription which reads “I’m in Charge”, my Aunty Norma new from the moment she laid eyes on me what sort of person I would turn out to be she was a midwife and she had delivered plenty of babies before me.

To play video messages sent to email, QuickTimeï¿½ 6.5 or higher is required.
Visit http://www.apple.com/quicktime/download to download the free player or upgrade
your existing QuickTimeï¿½ Player.Â Note: During the download
process when asked to choose an installation type (Minimum, Recommended or
Custom), select Minimum for faster download.
=============

I just received NOW 14 emails in a row from Greg Vigil inbetween the emails is one from CNN : Osama Bin Laden, another just in from Greg that is 15, what is going on. Greg are you okay? Where is Jeezelouise?

Now, can you google BILHARZIA, Schistosomiasis, Biltracide please without being a wise guy. No one likes a wise guy.

I know a lot about schistosomes, a whole lot. Why would I want to google them? You’re forgetting, I used to be a Morgie too. Do you know how to use a search engine?

Why is it important that you understand whether or not you are DOP? The reason is because DOP needs to be treated. Can you get well without it? It will require that you stop believing in Morgellons Disease. You cannot be well and cling to that belief.

This is bullshit Michael – pleaae call this whole thing off, people are getting HURT. Someone is desperate here, emails keep coming in from Greg I feel this man is in pain, hurting, someone needs to HELP ME NOW!!

Norman, who is this “we” who gets the point of there being no “morgellons disease”?
What do you mean, that everyone has gotten over there being no “morgellons disease”?
Why are you requesting anyone to look up Biharzia, Schistosomiasis, and Biltracide, and you’re wanting people to not be wise guys over it?

What seems to be so hard for you to just say what is the matter? You said your mother has an itchy scalp and a thingy came from her face that you witnessed. Well, so? That happens to millions of people. Does she think there’s anything wrong with that, or is it only you who does? Thank you.

Gillian knows a lot more about this disease than I do – I know the basic facts and figures (well a lot more really) and Gill is living under my roof (for a good reason) She is my friend. THIS IS TEARING HER APART FROM THE INSIDE. She just received 30+ emails from Greg Vigil (Morgellons USA) I opened 1 picture and it is a a foot that has a nasty legion or something . I am an Electronic Engineer by trade – I want to cut through the BS and get to “What is going on …..” and have spent many a month in the USA (TX) What is concerning me is this computer willl kill her but on the other hand if she doesn’t have the support of certain people it will also kill her. SmileyKinns / Tall Cotton – I dont know who the FU&^%$&^ to trust – if anyone. Who is this Greg Virgil character – you have better tools than I have – yes I know computers but I am not equipped to fight this shit. Gillian will be changing her email and phone number in the next day or so because of these people. If the disease doesnn’t kill her the computer and the STRESS will. Do you have any suggestions for Gillian and myself. Just cut any BS that maybe going on and help a very sick person get better – not via drugs – but to release the stress from her. SHE IS ILL. I dont care who is invloved at the CDC etc etc – Its not a life an attractive young lady needs to live. I await you reply – my personal email address is tony280162@hotmail.com. If you want to say anything just spit it out, all this cloak and dagger stuff is killing her and shitting me to tears because she is going downhill because of the internet, TRUST NO-ONE is my motto. I dont know who is pulling these puppet strings but I have a very sharp knife to cut these string (metaphorically speaking)

Over to you for an honest answer PLEASE – and I do mean Honest – I am who I say I am !!!!!!!!!!!!!!!!!!!!!!!!! Concerned !!!!!!!!!!!!!

I ONLY CARE ABOUT WHAT IS GOING ON WITH GILLIAN – I HOPE YOU UNDERSTAND

Thanks
Tony (same ph # as Gillian, which you have if you want to check)

I just received NOW 14 emails in a row from Greg Vigil inbetween the emails is one from CNN : Osama Bin Laden, another just in from Greg that is 15, what is going on. Greg are you okay? Where is Jeezelouise?

Hi SarahC,

I spent the late afternoon photographing gravesites- it’s a hobby – then had to go fill in for an employee who called out sick … nothing at all to do with Morgellons

Gillian has received 40+ emails from this Greg Vigil character – I dont know he/she is but this is causing distress for one young girl – which I am not going to stand for. Block his IP address – it has been done in the past via LymeBusters – I know its easy to get around but why fu*&^*&^ bother. I know I can ignore his emails but THAT IS NOT THE POINT . THIS IS SUPPOSED TO BE A SUPPORT FORUM NOT A FUCKING WITCH HUNT. I am pissed as and if anyone paints me into a corner I will come out swinging – and this has been going on long enough. I dont knbow if Mary / You / Greg / Who ever the fuck else is involved . It has become – not a supprt forum but a witches hunt – as I have said before explain who you all are or dissapear

Tony is on the phone to Dr Greg Smith at the moment…hmmmm….very interesting from what I hear.

Sounds like Greg thinks I sm DELUSIONAL DOP Tony is trying to convince him now, this is sick and twisted. We can not contact Mary Leitao. Someone please see if she is ok, thank you. Her voice message is full on the home phone number.

Proper treatment of those conditions, no doubt, might possibly help to eliminate just some of the people thinking that they have “morgellons disease”. There appears to be such an extremely archaic view of mental health care, by some morgie people, as well as inadequate patient-doctor communication skills, and misunderstandings of the role of a doctor, within this group. Even if some people would happen to be treating any of those conditions, I’m really doubtful whether some of them would even be aware of, or know to report, any troublesome side effects if they experienced them. Side effects could, and may even be throwing some people off and causing them to think it’s “morgellons disease”. I think there are plenty of physical conditions that aren’t being treated either. I think there’s probably a lot, really, if they think they have “morgellons disease”, instead.

Doctors don’t so much “take care of” patients, but, rather, .patients take care of themselves, “through” doctors. People who can’t take care of themselves have a problem, especially if they’ve gotten themselves fooled into thinking someone else is going to take care of them. There’s such a dire need for the proper assistance for everyone who thinks they have “morgellons disease”, but, sadly, that’s how this thing goes. Like was mentioned earlier, about medication side effects, I’ve also always been very concerned about some of these people experimenting with antibiotics they order on line.

A quick note first. The above 20 comments may seem like they are part of a discussion, but since I’ve turned on comment moderation, the comments all take several hours to become visible to anyone but the poster. I did this since the back and forth name-calling was getting out of hand. That problem improved, but might also lead to some confusion.

Bottom line, don’t immediately assume a comment is a reply to yours just because it comes after it. The commentor might not have seen your comment.

Tony & Gillian (SarachConnor), I am who I say I am – a retired computer programmer living in California. I do this alone, and do not work with anyone. I have no hidden agenda – I’m just trying to investigate the claims surrounding Morgellons from a scientific viewpoint.

I do not know Greg Vigil. I have never communicated with him. I suspect though that he is mostly harmless – just another guy who is obsessed with fibers. You’ve seen his MorgellonsUSA.com site, and I’d debunked some of his photos a while back:

If this blog were a typical Morgellons support forum I wouldn’t be here. I do not support any disease. I support people, expecially Morgellons believers, but I do so by helping them to realize the truth.

The truth is that there is no Morgellons disease. The Morgies are suffering from a wide variety of health problems. They need to listen to their doctors and treat the conditions they really have. This should be done on an individual basis.

These people are also delusional, and in many case they are also suffering from extreme paranoia. These situations should also be discussed with their personal doctors. Different people have different needs.

Some may need antipsychotic medication, but others may also need psychotherapy to deprogram their false beliefs. The typical Morgellons support forums are harming these people. They do that with lies and misunderstandings. They also promote the use of dangerous home remedies.

If anyone can’t handle the truth they have no business being here. Regardless, they definitely don’t need to be reading the lies that come through the forums of the Morgellons believers.

Anybody who has gotten confused over the identity of Michael, Tall Cotton, Jeezelouise, me, and, sometimes, Sarah Bione-Dunn, if you’re able, you need to think back to when the confusion first began.

If you aren’t able to identify when, and how, it started, and to rationalize to yourself, how you formed the belief, you need to see a doctor for those symptoms. Many people should be treating with physicians to begin with, but it seems that far too many aren’t. I think, but I don’t know, that quite a few people, if they’d ever find themselves with conditions even hinting at slight problems involving such a consuming fear and obvious errosions in their thought processing, help would certainly be sought for it.

Medication IS often the way to go, and, like was mentioned earlier, one has to know the side effects/interactions, and stay in close contact with a doctor and talk about the effects of the medication, especially, if it’s creating unpleasant ones. Just because a patient is placed on a prescription drug, it doesn’t mean one is expected to have to take it, if it isn’t providing anything beneficial. Some medications, though, take several weeks before they have much of an effect. Things take time, but there are different medications to discuss with a doctor, to see what might be the right one to try. It can take a lot of time to work out the right one, in the right dosage.

It’s very misfortunate, and very sad, but I think one person, over the past month, or two, is creating a significant part of this turmoil, due to their own fears and misunderstandings. A person’s own fears, coming through in the form of false accusations, and warnings, naturally, will serve, only, to multiply fears in another like-minded person.

Medication is needed. If that’s an unattractive notion, then, definitely, at least, have a go at talk therapy. Both, though, are the ideal scenario, for anyone thinking that they have “morgellons disease”. So many morgie people have complained of feeling mishandled, mistreated, and uncared for by so many doctors. There is a solution for that. The solution is, the right kind of doctor who specializing in listening and caring. Tell a therapist about how those doctors did you. People need appointments with licensed psychologists (especially if they’re against meds, rather than a psychiatrist), so they can talk to a doctor who’ll listen. They’ll work on getting solutions.

In the meantime, will this help anyone? (I hope it won’t just cause more confusion.) What if I became convinced that Starlink, Al, Sarach, and Tony, were all one person?

Absolutely, what Jeezlouise stated in comment #307 is 100% true. This blog is clearly identifiable as being what it is, and it always has been what it is. People, here, have been in the uncomfortable positions of not knowing, since none of us are mental health care professionals, what do to about the people who come here to upset themselves.

I emailed lots of people last night, and nothing in my email this morning.

#273SarachConnor (abac68) Says:
September 24th, 2006 at 9:48 pm

I can’t remember who I emailed over the past couple of days, but I told them that I was having the voices in my head. They won’t go away.

Tony, that may be why Greg incessantly sent emails. Also, it isn’t wise to publish email addresses, telephone numbers, and full names of people. Several weeks ago, your lady said that she had called and begged from her doctor…

Topic: Occams Menopause

#116SarachConnor (abac68) Says:
August 29th, 2006 at 2:39 am

Spoke to my shrink today, I begged him to put me in the psych. ward – I need time out from this.

This blog isn’t, and it never has been, a “morgellons disease support forum”. It has always been clear that this is a “debunking blog”. I don’t think all people have the full capacity to understand that, though, and they do believe it is a support forum. Their stress levels are sure to heighten, if they are compelled to read here, and it does. I’ve tried to dissuade them, and to remind them to refrain from upsetting themselves. Some people view Michael’ blog, trying to understand what has made them fall under a false belief. However, there are other very disturbed people who bring their problems here, only, with the sole purpose of causing even more confusion to the group of people who think that they’re victims of “morgellons disease”. They want those people to remain confused, and it’s obvious that the aspects of their own illnesses make them enjoy spreading confusion and fear. That is the glue that bonds them together, as they’re falling apart. Tony, I thought you should see what was written above, in that comment from August 29th. Y’all be careful, and good luck.

Research grants are being awarded and serious research is beginning on a large scale. My hopes for the discovery of a cure for Morgellons are higher than ever before. People now have a better understanding of what I have been going through. They now can see why I suffered such great losses. I was right, and I am finally vendicated. The doctors that misdiagnosed me, and said that I was DOP look pretty silly now. Those that ridiculed me for my beliefs are having to eat crow.

Scenario # 2

CDC rules that Morgellons is not a disease or syndrome.

Path # 1

The ruling does not change my belief that Morgellons is a disease or syndrome. The accomplishments listed under scenario # 1 are not realized. I know I have something, so my search will continue. I am disappointed in the ruling. It’s not likely that much research by qualified people will take place. The cause and cure for this insidious disease/syndrome may never be realized. I’m pretty depressed about how this has turned out. What am I going to do now? My situation seems hopeless.

Path # 2

I accept the ruling of the CDC. I believed in this strongly, but I guess I was wrong. I’m going to start listening to my doctor and following his advice. Maybe he was right. I hope he was, and that he can find a way to cure me of what I really have, or at least bring me some relief from my pain/itching/discomfort. If my doctor says I need psychotherapy to deprogram the false beliefs I have held, I will begin the treatment. If he says that I need psyche medicines I will follow his instructions and take the prescribed medicine.

There may be other options or variations. Just something to think about.

I failed to painstakingly think a comment all the way through, and to thoroughly consider how carefully things have to be worded, sometimes, so in an effort to reduce further misunderstandings, when I’d said,

“In the meantime, will this help anyone? (I hope it won’t just cause more confusion.) What if I became convinced that Starlink, Al, Sarach, and Tony, were all one person?”

What I was trying so hard to illustrate, was, for anyone who either has the fixed belief that Michael, Tall Cotton, Jeezelouise, I, and, sometimes, Sarah Bione-Dunn, are all the same person, or that we all work for Michael,

please, try as hard as you can to imagine this….

What if someone developed a bizarre belief concerning who YOU are, and they stayed extremely upset over it. Try to imagine them always insisting that YOU were somebody else. Picture them fretting and worrying themselves over it, all of the time, desperately convinced that YOU were really somebody else. How would YOU feel, seeing the person so utterly bewildered and confused, and relentlessly trying to convince anyone that they could, that YOU were not really YOU?

One person, alone, thinking like that, and I think YOU would find it disturbing, too. Imagine more than one, being upset like that, knowing that YOU could do nothing to settle them down.

I have received a flood of emails. I only opened this one because it was from Dr Greg Smith. Tony had asked him to email something and send it to me email address, so I thought I would open it. I don’t want to read it. I have been out shopping, had lunch in the sunshine, and haven’t read any posts yet but will do. Just trying to relax and enjoy the sun.

I think Sally has set up her own “Morgellons” programme in the back garden, two of her members just popped by – a nice black/white cat and a ginger/white one!!

Hi to all!
I am not the NMO, and am doing the job which has fallen to me and am willing to continue…..but the NMO is NOT GOING TO BE LIKE MRF!
Chas and I (and our awesome spice {plural of spouse} ) left that organization because we felt it was not a board run foundation. It was, and remains, Mary Leitao’s show. Creativity and innovation were stifled!
The NMO is a work in progress and informal at this time. My vision is that it will become a NPF with 501 (c) (3) status in the future. It needs to be governed by the board of directors and no one person should have final authority! It should represent all patients with Morgellons disease.
I see the organization as a way to coordinate the efforts of anyone who wants to help us move toward our common goal—beating this disease! Whether or not an individual wishes to be formally affiliated with the group is an individual choice. If someone wants to work on one of our projects—come on down! If anyone wants help on THEIR projects, we’ll try to send interested workers your way!
A prime example of the utility of an organization is shown by Cliff’s idea and the number of e-mail and phone calls many of us receive daily. Efficiency and good use of available resources can come from the NMO group working with anyone who wishes to help! We can utilize the time, energy and talents of the many folks who want to help. We can be sure the work-load is shared among enough people no one gets burned out!

Greg Smith

======================
But then again, I’m not NMO just like I wasn’t MRF and I was about ready to contact all regarding this issue anyway. Because I am linked as the MORE JAMM coordinator, folks have been using this as a ‘hotline’. My hands are more than full, but I will ALWAYS stop for a Newbie in distress and they are way in distress!
So here comes the politics again. I’m a black op, always have been a black op and I answer to Randy Wymore. I know the idea of some kind of support system is very dear to him and OSU at one time discussed handling it although Mary L. said the money would be better spent elsewhere (bear me witness Cindy!) and I asked Mary HOW could a NFP spend monies specifically set aside for a specific purpose to other ends? She basically said we had different priorities and never gave me a clear answer. So I’m kinda like Cindy and Chas….burned once…burned twice? Not gonna happen. I’d rather remain as the Oklahoma poster child for Morgellons and be overworked than to have to get political and be silenced or prohibited in the way I handle ‘my Morgies’. There are tons of Okie Morgies ready, willing and able. But due TO the fallout we are all a little afraid of what yet another organization might become. (No offense meant, you all are doing a great job but boy did things get screwed up at the MRF and caused all kinds of potential allies to be more wary than they normally would be). And the CDC laughs it off, ’til I spin Dan Rutz back as hard or harder than he spins me.
Bottom line, I guess I’m asking where I stand in relation to the NMO and how my participation in all the studies, media, organizing, support, will fit in. Would you rather I continue black op? That’s fine but I DO need some help. I’m only one Morgie. I get some trusted help but still, I like to oversee the outcomes of some of these things. When they are in safe hands….I let
em go.
So….the question is….do you want me to participate or would I be better off remaining black op and as Randy’s kinda ‘quiet personal assistant, Morgie bounce back person’? It’s all up to y’all. I don’t care as long as I keep the cause rollin’.
Love to all,
Karen
—– Original Message —–
From: CMicke1065@aol.com
To: gvigil4@cox.net ; ccaseyrn@hughes.net ; chazman@hughes.net ; edspencer3000@mindspring.com ; gill040568@hotmail.com ; greema@tds.net ; internationallivve@yahoo.com ; JDBS5742@aol.com ; dblcreek1921@sbcglobal.net ; l46cheetah@yahoo.com ; nekoson@msn.com ; pattinash@comcast.net ; cisfl2004@netzero.com ; rswymore@yahoo.com ; s3support@mail.com ; scandi5555@hotmail.com ; SGreg647@aol.com ; Sh0shanna@aol.com ; morgellonscanada@hotmail.com ; Sunnyand7777@yahoo.com
Sent: Monday, September 25, 2006 9:28 AM
Subject: THE GREAT DELUGE..THE FLOOD OF EMAILS & A POSSIBLE ANSWER?

Hi Guys!

We may eventually want to consider setting up a committee of volunteers to deal with the flood of emails that we collectively receive! Either that or at least a group of people to sift through them for “keepers” to be forwarded on to a central NMO data bank or library.

The particular recipients among us of any such emails can send back a universal generic reply such as:

Dear ____

“Due to the large volume of email we receive we regret that we are unable to personally answer your email. However we assure you that we do read all incoming mail.

We at the NMO appreciate the time you have taken to write to us. We highly value the input we receive from all our friends who contact us.

The opinions, observations, and suggestions of those who form the New Morgellons Community are of great and critical importance to us. It is simply that we currently do not physically have the time or resources to personally reply to the hundreds of excellent emails we receive weekly.

Nonetheless, we encourage all members of our community to continue to write should you be so inclined. Again, allow us to stress that all emails we receive will be read.

It is for this reason that we would like to assure you that your opinion counts and it will always be considered.

For those who are interested in researching past and ongoing progress or events as they affect the Morgellons community, please allow us to recommend the following web sites and Internet resources:

1……
2…..
3…..

Thank you…etc. etc…

***

Doing something like this will free up a heck of a lot of time. Perhaps we can discuss this issue at the next con call?

The NMO has to be one of the most ridiculous wastes of time and energy I have ever witnessed. What on earth is their purpose? They don’t support the people, they support a non-existing disease they call Morgellons. It’s utterly foolish.

The CDC has formed a task force to investigate their claims. What else do they want. As soon as the CDC makes its report, Morgellons should be history. I’m sure it won’t be, but it should be, and the lie of Morgellons is definetly a blemish we should never be proud of.

“If there were a peer-reviewed study, with 15 or 20 patients who have the same exact thing in their skins, then maybe I’d believe it,” Lynch said. “When fiberglass curtains first came out, many people with skin conditions were diagnosed with delusions of parasitosis (DOP). But studies showed these patients had tiny (fiberglass particles) in their skin.”

“when morgellons first came out we thought it was dop but a peer reviewed study showed these patients actually had _____ _____” ;p

Ha ha but seriously what do these quotes prove? To me it says; yes dop exists, it doesn’t really explain away the whole morgellons phenomenon.

Any medical expert is only an expert in their field and only an expert of what is already studied more accurately what is common

I think what might be going on is that the people with numerous diseases and maladies that cause crawling skin have been diagnosed dop. Since morgellons has been coined these non-delusional people have called their misdiagnoses morgellons. I do not find it hard to believe doctors are quick to diagnose. I think instead of debunking, dismissing morgellons, someone should try to find out what is causing the symptoms on an individual basis, I don’t think doctors are able to do this, I think what maybe happening in many cases is instead of the doc giving referrals it’s a quick dop diagnosis.

So this would mean morgellons sufferers are not only comprised of people with dop, but people that have legit conditions being misdiagnosed as dop, quite frankly, as indicated in the above quote, the med community cannot tell the two groups apart, that’s troubling no?

What’s troublesome about this site is your tendency to ignore the idea of legit diseases being misdiagnosed while you push the idea that everyone with morgellons is delusional.

I walk along a thin line darling
Dark shadows follow me
Here’s where life’s dream lies disillusioned
The edge of reality

Oh I can hear strange voices echo
Laughing with mockery
The border line of doom I’m facing
The edge of reality

On the edge of reality she sits there tormenting me
The girl with the nameless face
On the edge of reality where she overpowers me
With fears that I can’t explain
She drove me to the point of madness
The brink of misery
If she’s not real then I’m condemned to
The edge of reality

On the edge of reality she sits there tormenting me
The girl with the nameless face
On the edge of reality where she overpowers me
With fears that I can’t explain
She drove me to the point of madness
The brink of misery
If she’s not real then I’m condemned to
The edge of reality

Robert Sez: Oooops, I just saw S Bione-Dunn’s witty cooment on the diagnosis of all sorts of things. FYI, Very strict diagnostic criteria exist for all mental illnesses and are published in the DSM TR -IV by the American Psychiatric Association. And, no, it doesn’t list Morgellon’s because at this point we don’t know if it’s a mental illness, a disease, or nothing at all.

The DSM-IV-TR does list the type of folks who have “Morgellons” symptoms– it’s under “monosymptomatic hypochondriosis.”
When you go to the doctor with a cold, you get treatment for a cold. When you go to 30 doctors and they all say DP, you’ve got DP, no matter what you read on the internet.

Just wanted to share this with you all. I wrote Dr Wymore, and thanked him for working so hard for ALL of us.

Hello,
>
>This email isn’t specifically in response to Dr.
>Smith’s email, but is in response to this entire block
>of communications.
>
>Cliff, your ‘canned response’ (no offense intended as
>that is the ONLY way to deal with a huge volume) is
>part of the strategy that we have adopted here at OSU.
> There is no intent at being cold or unresponsive to
>anyone who inquires, but the reality is that, indeed,
>MOST initial inquirees ask a variation of the same
>questions. It becomes logistically impossible to
>write a response from scratch every single time. By
>having a basic common response, it is possible to
>quickly personalize it, by answering specific
>questions that the common response might not deal
>with. I’ve got e people helping me out with this at
>the moment.
>
>Karen, you and your team have done a phenomenal job of
>getting the MORE JAMM organized! I am greatly looking
>forward to the festivities & the opportunity to spread
>the word. Thanks to Cindy & Chas & everyone who has
>helped out with this in any capacity. It should be an
>interesting weekend that might just raise some
>awareness.
>
>FWIW, I will be giving a public informational talk at
>All Souls Unitarian Church in Tulsa, OK on October 22.
> I am willing to travel to give public talks in public
>venues, or research talks at university/college
>settings. Let me know if any of you can arrange for
>something & I will try to accomodate.
>
>For Everyone, please keep in mind that ANYTHING that
>includes OSU, OSU-CHS or myself MUST be absolutely
>free of any political or Morgellons disease ‘turf-war’
>issues. My lab & I are biomedical researchers who
>spend 100% of our research time on the topic of
>Morgellons Disease. I pulled my research technician
>off of anything BUT Mrgellons Disease research several
>months ago. Progress is glacial in pace, but it is
>100% of the research commitment. Keep in mind that we
>are also employees of the state of Oklahoma and must
>be apolitical and agenda-free where it comes to the
>actions/activities of grass-roots organizations.
>Please do not even include me in any emails that
>involve personal or group agendas if it involves
>negative comments about anyone other than: unkind and
>imcompetent physicians and the less than speedy
>response of various governmental agencies (hint,
>hint). Yes, I have my own PERSONAL political views on
>just about anything imaginable, but that must be kept
>separate from my role as a Morgellons researcher and,
>for the moment, seemingly a ‘front-man’ for bringing
>the topic of Morgellons Disease to the
>public-at-large. Beyond that, my goal is to figure
>out what is going on with regard to the origins,
>treatment and eventually a cure of Morgellons Disease.
>
>
>Best wishes to everyone who is working on this growing
>health problem.
>
>I look forward to seeing some of you at the MORE JAMM
>extravaganza!
>
>Randy
>
>
>— SGreg647@aol.com wrote:
>
> > Hi to all!
> > I am not the NMO, and am doing the job which
> > has fallen to me and am
> > willing to continue…..but the NMO is NOT GOING TO
> > BE LIKE MRF!
> > Chas and I (and our awesome spice {plural of
> > spouse} ) left that
> > organization because we felt it was not a board run
> > foundation. It was, and
> > remains, Mary Leitao’s show. Creativity and
> > innovation were stifled!
> > The NMO is a work in progress and informal at
> > this time. My vision is
> > that it will become a NPF with 501 (c) (3) status
> > in the future. It needs to
> > be governed by the board of directors and no one
> > person should have final
> > authority! It should represent all patients with
> > Morgellons disease.
> > I see the organization as a way to coordinate
> > the efforts of anyone who
> > wants to help us move toward our common
> > goal—beating this disease! Whether
> > or not an individual wishes to be formally
> > affiliated with the group is an
> > individual choice. If someone wants to work on one
> > of our projects—come on
> > down! If anyone wants help on THEIR projects,
> > we’ll try to send interested
> > workers your way!
> > A prime example of the utility of an
> > organization is shown by Cliff’s
> > idea and the number of e-mail and phone calls many
> > of us receive daily.
> > Efficiency and good use of available resources can
> > come from the NMO group working
> > with anyone who wishes to help! We can utilize the
> > time, energy and talents
> > of the many folks who want to help. We can be sure
> > the work-load is shared
> > among enough people no one gets burned out!
> >
> > Greg Smith
> >
> >
> > ======================
> > But then again, I’m not NMO just like I wasn’t MRF
> > and I was about ready to
> > contact all regarding this issue anyway. Because I
> > am linked as the MORE
> > JAMM coordinator, folks have been using this as a
> > ‘hotline’. My hands are more
> > than full, but I will ALWAYS stop for a Newbie in
> > distress and they are way
> > in distress!
> > So here comes the politics again. I’m a black op,
> > always have been a black
> > op and I answer to Randy Wymore. I know the idea of
> > some kind of support
> > system is very dear to him and OSU at one time
> > discussed handling it although
> > Mary L. said the money would be better spent
> > elsewhere (bear me witness Cindy!)
> > and I asked Mary HOW could a NFP spend monies
> > specifically set aside for a
> > specific purpose to other ends? She basically said
> > we had different
> > priorities and never gave me a clear answer. So I’m
> > kinda like Cindy and
> > Chas….burned once…burned twice? Not gonna
> > happen. I’d rather remain as the Oklahoma
> > poster child for Morgellons and be overworked than
> > to have to get political
> > and be silenced or prohibited in the way I handle
> > ‘my Morgies’. There are
> > tons of Okie Morgies ready, willing and able. But
> > due TO the fallout we are
> > all a little afraid of what yet another
> > organization might become. (No offense
> > meant, you all are doing a great job but boy did
> > things get screwed up at
> > the MRF and caused all kinds of potential allies to
> > be more wary than they
> > normally would be). And the CDC laughs it off,
> > ’til I spin Dan Rutz back as hard
> > or harder than he spins me.
> > Bottom line, I guess I’m asking where I stand in
> > relation to the NMO and how
> > my participation in all the studies, media,
> > organizing, support, will fit
> > in. Would you rather I continue black op? That’s
> > fine but I DO need some
> > help. I’m only one Morgie. I get some trusted help
> > but still, I like to oversee
> > the outcomes of some of these things. When they
> > are in safe hands….I let
> > em go.
> > So….the question is….do you want me to
> > participate or would I be better
> > off remaining black op and as Randy’s kinda ‘quiet
> > personal assistant, Morgie
> > bounce back person’? It’s all up to y’all. I don’t
> > care as long as I keep
> > the cause rollin’.
> > Love to all,
> > Karen
> >
> > —– Original Message —–
> > From: _CMicke1065@aol.com_
> > (mailto:CMicke1065@aol.com)
> > To: _gvigil4@cox.net_ (mailto:gvigil4@cox.net) ;
> > _ccaseyrn@hughes.net_
> > (mailto:ccaseyrn@hughes.net) ; _chazman@hughes.net_
> > (mailto:chazman@hughes.net) ;
> > _edspencer3000@mindspring.com_
> > (mailto:edspencer3000@mindspring.com) ;
> > _gill040568@hotmail.com_
> > (mailto:gill040568@hotmail.com) ; _greema@tds.net_
> > (mailto:greema@tds.net) ;
> > _internationallivve@yahoo.com_
> > (mailto:internationallivve@yahoo.com) ;
> > _JDBS5742@aol.com_ (mailto:JDBS5742@aol.com) ;
> > _dblcreek1921@sbcglobal.net_
> > (mailto:dblcreek1921@sbcglobal.net) ;
> > _l46cheetah@yahoo.com_
> > (mailto:l46cheetah@yahoo.com) ; _nekoson@msn.com_
> > (mailto:nekoson@msn.com)
> > ; _pattinash@comcast.net_
> > (mailto:pattinash@comcast.net) ;
> > _cisfl2004@netzero.com_
> > (mailto:cisfl2004@netzero.com) ;
> > _rswymore@yahoo.com_
> > (mailto:rswymore@yahoo.com) ; _s3support@mail.com_
> > (mailto:s3support@mail.com) ;
> > _scandi5555@hotmail.com_
> > (mailto:scandi5555@hotmail.com) ;
> > _SGreg647@aol.com_
> > (mailto:SGreg647@aol.com) ; _Sh0shanna@aol.com_
> > (mailto:Sh0shanna@aol.com) ;
> > _morgellonscanada@hotmail.com_
> > (mailto:morgellonscanada@hotmail.com) ;
> > _Sunnyand7777@yahoo.com_
> > (mailto:Sunnyand7777@yahoo.com)
> > Sent: Monday, September 25, 2006 9:28 AM
> > Subject: THE GREAT DELUGE..THE FLOOD OF EMAILS & A
> > POSSIBLE ANSWER?
> >
> >
> >
> > Hi Guys!
> >
> > We may eventually want to consider setting up a
> > committee of volunteers to
> > deal with the flood of emails that we collectively
> > receive! Either that or
> > at least a group of people to sift through them for
> > “keepers” to be forwarded
> > on to a central NMO data bank or library.
> >
> > The particular recipients among us of any such
> > emails can send back a
> > universal generic reply such as:
> >
> > Dear ____
> >
> > “Due to the large volume of email we receive we
> > regret that we are unable to
> > personally answer your email. However we assure
> > you that we do read all
> > incoming mail.
> >
> > We at the NMO appreciate the time you have taken to
> > write to us. We highly
> > value the input we receive from all our friends who
> > contact us.
> >
> > The opinions, observations, and suggestions of those
> > who form the New
> > Morgellons Community are of great and critical
> > importance to us. It is simply that
> > we currently do not physically have the time or
> > resources to personally
> > reply to the hundreds of excellent emails we
> > receive weekly.
> >
> > Nonetheless, we encourage all members of our
> > community to continue to write
> > should you be so inclined. Again, allow us to
> > stress that all emails we
> > receive will be read.
> >
> > It is for this reason that we would like to assure
> > you that your opinion
> > counts and it will always be considered.
> >
> > For those who are interested in researching past and
> > ongoing progress or
> > events as they affect the Morgellons community,
> > please allow us to recommend
> > the following web sites and Internet resources:
> >
> >
>=== message truncated ===
>
>
>Randy
>
>-Imagination is more important than knowledge. For knowledge is limited to all we now know and understand, while imagination embraces the entire world, and all there ever will be to know and understand. Albert Einstein-

Smileykins said: One person, alone, thinking like that, and I think YOU would find it disturbing, too. Imagine more than one, being upset like that, knowing that YOU could do nothing to settle them down.

I have never seen the movie “The 6th Sense” but have been told all about it.

My experience on the way to the supermarket, whilst walking around getting my groceries, and then on the way home was SO SO bizarre. I don’t see dead people yet, they just speak to me!!! Nice to get some celebrities dropping by though.

I could have sworn I drove there in the Ford Explorer, because I came back on my broomstick!!! with a laugh of course, but then ET brought me back down to Earth.

Just polished it all off with some yoghurt, fruit, and a bun from the bakery…yum.

Randy,
I deeply appreciate both what you are doing and the limitations under which you must operate. I want nothing to hinder, embarrass, or in any way interfere with your efforts!

On a deeply personal level I was moved by what you wrote. Anyone who really needs to know anything about past history is already aware.

All my energy will be devoted to the future! You reminded me of the lesson all children in my part of the country are taught: “If you can’t say something nice, don’t say anything at all!” So I resolve to avoid all mention of ML and MRF and to follow the lesson from childhood in situations in which I must discuss them!

Thank you for reminding me of this ethical principle that I should have more carefully followed!

I think what might be going on is that the people with numerous diseases and maladies that cause crawling skin have been diagnosed dop. Since morgellons has been coined these non-delusional people have called their misdiagnoses morgellons. I do not find it hard to believe doctors are quick to diagnose. I think instead of debunking, dismissing morgellons, someone should try to find out what is causing the symptoms on an individual basis, I don’t think doctors are able to do this, I think what maybe happening in many cases is instead of the doc giving referrals it’s a quick dop diagnosis.

Noody is going to be diagnosed with DOP just because of crawling skin. At worst they will get “ideopathic pruritus”.

For DOP to be diagnosed, there needs to be some delusion regarding parasites. No doctor can show that itching alone is delusional. There would have to be something else – like the belief that fibers are emerging from their skin.

I keep getting emails also from Yahoo 1 cure, makes no sense to me. I joined that group just today, but I don’t think I can really be bothered with internet rubbish anymore, I just want to concentrate on enjoying my life.

I watched a small amount of a video that was on that website to do with HAARP. I will share the links with you.

Oh I wish I was in the land of cotton
Old things they are not forgotten
Look away, look away, look away Dixieland
Oh I wish I was in Dixie, away, away
In Dixieland I take my stand to live and die in Dixie
Cause Dixieland, that’s where I was born
Early Lord one frosty morning
Look away, look away, look away Dixieland
Glory, glory hallelujah
Glory, glory hallelujah
Glory, glory hallelujah
His truth is marching on
So hush little baby
Don’t you cry
You know your daddy’s bound to die
But all my trials, Lord will soon be over

I want to share something funny, well I have to laugh really, otherwise I would think someone was coming after me givin my mood swings. “T” got a new customer today called “Axel” he works for “O’Donnell & Griffin” – and this fellow also has the same last name as “T”!!!

And I’d like to chime in too. First, I had removed Doc’s email so I don’t know how he got it in the first place, just SO he wouldn’t be involved and secondly, I truly was trying to use it as an analogy and did not intend to dis anyone or organization on a personal level….more of the issue of hearing more reasons why SOMETHING CAN’T BE DONE rather than why it can be done. My apologies to all. This truly was not my intention, but as I told Randy, talking it out helped me decide that I must continue to do things my own personal way. I WILL have a hotline / eline, I’ve priced it, it’s 60 bucks a month, I’ll pay out of my own pocket and I’ll delegate. I’m quite accustomed to doing that and only to those I know and trust to handle the issue with care and sensitivity that it deserves, but as I said….I KNOW I’ved saved lives and I don’t want fame and glory I want to continue the work of doing just that. Patient to patient support, not organizational to patient. They wanna talk to either a doctor or patient ANYWAY. It can and will work.. .. tell me it can’t be done….then watch me do it! Sorry I’m so stubborn folks but this IS my passion….the patients….and my deep apologies to all, no offense meant and I would never intentionally endanger Doc Wymore or anyone else for that matter. I have prepared an invitation and offer a booth space manned by our volunteers for ALL Morgellons groups. Non-exculsion is the name of the game! Can’t live it any more, the divisiveness. And as far as the team doc…..it’s just me, my boys and now Laur, thank the higher powers that be! This monster (and what a beautiful one it is indeed!) created itself and WAS blessed with some kind of Divine oversight. It wasn’t ME, or anyone else…..it MADE ITSELF HAPPEN. Without a snafu! Now that ain’t natural folks……ya think it’s related to the Morg???? Lighten up…just a little humor. So again accept my apologies, I will be more careful in the future indeed.
Blessings to ALL,
Karen

* Go to a doctor, concerned that fibers in youir skin are a problem — expect the proper DOP diagnosis
* Don’t do follow-up — .expect to keep the problem, and to have it get worse
* Go to another doctor, concerned that fibers in your skin are a problem — expect the same diagnosis
* Repeat, repeat, without learning from the experience — ask yourself why
* Blame the doctors and develop distrust — expect to keep the problem, and to have it get worse
* Do stupid things to yourself — expect to get a whole lot worse
* Join a group of people, some, even worse off than you, and do stupider things to yourself
* Form a tight bond with them, because they understand you like nobody else
* Continue to get worse, and think that any of your health problems are all due to the fibers

Oh by the way, as you know I am rather short on cash at the moment, so I asked ‘T’ if he could book the hotel for me on his credit card since I don’t have one, thank goodness, he was kind enough to help me out.. I know he is not too happy with me going, but I said you know I need some rest, a really good nights sleep.

Sarah Bione-Dunn Says:
September 26th, 2006 at 2:03 pm
What good is it to go stay in a hotel? Is the problem not within your skin?

Of course the problem is in my skin. But when you live with a person who acts really really strange when one is really really ill, I think it is best to be by myself. Which I did.

Had a lovely evening, took food with me, fruit, yogurt, stuff from the bakery. When out and bought a burger, fries and ice-cream. Curled up with a magazine, watched tele. Had a lovely bath and fell asleep really early.

I feel like poo this morning. I have that virus my family, and “T” has. I blow my nose and it is full of blood…yuk hey?

Karen,
I tremendously appreciate you and what you are doing! I absolutely LOVE your attitude “tell me it can’t be done and I’ll do it and show you!. I am glad you have asked other Morgellons groups to attend the Jamm! We all have the same ultimate goals and can be more powerful working together. Non-exclusion is and will be the policy of the NMO!
I also agree none of us needs divisiveness! To that end, I want to address the issue of difficulties between you and Charles Holman. Normally, I would address such an issue privately, but since this group got a copy of your e-mail to Randy Wymore detailing your issues, I felt the group deserved to get this as well.
Charles and I have become very close friends. I think you have mis-judged him and his intent. I have, on several occasions, heard him talk about how impressed he has been by the work YOU are doing. I truthfully believe he respects what you are doing and is appreciative of your efforts. He is doing a tremendous amount of work getting the NMO organized, etc., etc. , thus causing him considerable stress. I know from conversation with him that he is sorry he has caused you to become upset.
No matter, as the point I want to make is this: Individuals with strong personalities butt heads on occasion! I’ve got one of those powerful personalities and have been in confrontations during business meetings that were heated, indeed! You and Charles certainly have strong personalities. You have clashed. Okay. The two of you can work it out—-or not! What none of us can do is expend energy when personalities clash and disagree! We need all our energy to do the job before us!
And certainly, if you continue to clash, you do not have to directly work with each other! I still hope you will be willing to work with the NMO even though you have made a decision to remain in “black op’s”. I certainly respect your decision to remain independent and not be formally affiliated with the NMO! But as I have said time and again, we have more power to effect change if we work together. I feel exactly the way you do, “Can’t live it anymore, the divisiveness.”
That’s the purpose of this note—to put divisiveness behind us. Let’s put away negative energy and focus on the tasks at hand. Both you and Charles are vital to achieve our goals and beat this disease. We all have to be careful to not let anything related to ego or personality clashes or anything else distract us from the important work!

Ya know, there is absolutely no question in my mind that God is directly this drama and we are following His plan. He is making things happen exactly as you described. I’m regularly overwhelmed emotionally by the job I find myself doing! But I continue to get strength and guidance to press on from His Presence.

While doing God’s work, we should all strive to live as the best, most loving, caring we can be! From the love and sense of purpose, we can find the strength to forgive and work together even if we clash.

Thank you in advance, Karen and Charles! I know you both have the same goals as the rest of this group. To advance toward those goals, I know you both will strive to put aside your issues and move forward!

To again put in my 2 cents worth—-and to reply to several issues—I totally agree with Cliff’s idea. We need to set up a method to collect data but also to be sure each and every person who communicates with any of us gets a prompt reply. We must support patients in every way we are able while continuing to take the steps to get Morgellons recognized, get funding for research at OSU as well as for any other scientists or research physicians who wish to do research on Morgellons, keep the CDC’s collective feet to the fire and educate the lay public as well as the scientific and medical communities! Thus, we have a huge job ahead of us!
Karen, the job you’ve done getting More Jamm organized blows my mind! Awesome job! Thank you. As I stated before, formal affiliation with the NMO is a personal choice. We can work together in many ways and that cooperative effort makes us more efficient and powerful!
In my mind, the NMO exists to facilitate and help coordinate the efforts of all who want to work to solve the mysteries about this disease! As the organization is a work in progress, any suggestions and ideas about the role and functions of the NMO are appreciated. I will also ask that any of you who want to formally be a part of the group, let me or Charles know. Similarly, let me know if you want to be “in the loop” but don’t desire to formally affiliate with the organization.
I am in awe that I am in the company of such wonderful, caring, compassionate, and creative people! Thank you, one and all!

Below is a copy of my “Astrology Profile” – I think it speaks for itself..

You are always questioning and learning, and you seem young and alive no matter what your chronological age, for your mind is always alert, curious, flexible and open to new experiences. You have a childlike enthusiasm for anything new and you learn easily, but you also get bored rather quickly. You can be something of a scatterbrain, for you tend to have so many ideas and irons in the fire that it is hard to keep track of them all. You need and crave variety, change, mental stimulation, and an active social life.

You are a steadfast and patient soul, capable of tremendous devotion, dedication, endurance, and constancy. The ability to follow through and stick with things is one of your greatest assets. Once your course is set, you pursue it tenaciously until it is completed, stubbornly resisting any attempts to sway you from your purpose.

Taurus’ influence inclines you to be somewhat headstrong, with a very set and determined manner. Find out more with your full-length reading…
Free Sample Ry Redd’s Edgar Cayce Past Life Reading for
Gillian
Remember, Gillian, success or accomplishment in life is not a matter of some great force or influence. Just as taught by the Master, it is not the power of the storm or of the earthquake or of great noises and the like. Rather it is the still small voice speaking from within you which becomes the influence through which movements of truly great forces really arise.

Since your childhood, being outdoors and living close to nature is probably more significant to you than to most others. This love of nature and the great outdoors is from one or more past lives spent on a farm or in nature settings. For ages countries on the Mediterranean such as ancient Egypt, Greece and virtually all of the ancient Mideast lived in close contact with nature. So did the Native Americans of pre-Columbian America. And surely you were one of them.

I cut and paste a few of your posts into the on-line form, and here’s what it came up with:

You have a strong need for other people to like you and for them to admire you. You have a tendency to be critical of yourself. You have a great deal of unused capacity which you have not turned to your advantage. While you have some personality weaknesses, you are generally able to compensate for them. Disciplined and controlled on the outside, you tend to be worrisome and insecure inside. At times you have serious doubts as to whether you have made the right decision or done the right thing. You prefer a certain amount of change and variety and become dissatisfied when hemmed in by restrictions and limitations. You pride yourself as being an independent thinker and do not accept others’ opinions without satisfactory proof. You have found it unwise to be too frank in revealing yourself to others. At times you are extroverted, affable, sociable while at other times you are introverted, wary and reserved. Some of your aspirations tend to be pretty unrealistic.

I never fell in love so easily
Where the four winds blow i carry on
I’d like to take you where my spirit flys
Through the empty skys
We go alone never before having flown
Faster than light’ning is this heart of mine
In the face of time i carry on
I’d like to take you where my rainbow ends
Be my lover friend
We go alone never before having flown

I am your hurricane
Your fire in the sun
How long must i live in the air
You are my paradise
My angel on the run
How long must i wait
It’s the dawn of the feeling
That starts from the moment you’re there

You’ll never know what you have done for me
You broke all those rules i live upon
I’d like to take you to my shangrila
Neither here or far away from home
Never before having flown
There i’d like to take you where my spirit flys
Through the empty skys we go alone
Never before having flown

Very interesting. Thank you. I do apologise for being a little reserved today. I am feeling a little under the weather, “thick” head you know.

Michael – please go this link and watch the video. I am flying “solo” at the moment, but I have reached within myself to keep finding more and more strength. My father told me to do this 2 years ago, and I have.

If I was to tell you the dream that my Mum had the night before last, and I was to interpret it for you, I think your head would stand up on the back of your neck.

My Godmother was speaking to my mum through her dreams. My interpretation of the dream is that my Godmother was trying to tell my mum that her “baby” (me) is dying.

When mum told me about her dream I said it all makes sense mum. She asked why? I told her that the very same night she had the dream, I was very upset with “T” and felt so ill. He was drunk and I was distressed. I got that angry I had a tantrum and started punching his arm. I said to mum every time he drinks, it brings “evil” into this home and I see it and feel it and I become so so frightened because I am Gods child.

I told my mum that my silver charm bracelet broke when I punched “T” it fell on the bed and I started to sob because one of the charms had fallen off and it was the one in the shape of a childs head with the inscription “Gillian”. I screamed at him saying “Look, look what you have done..brought evil into this house”. I sobbed myself to sleep.

I told you I live in the “House of Horrors”, well actually my mum gave it that name (she is a funny lady also).

The back door keeps slamming, the lock has broken I guess through the night..I had this door open yesterday to let the fresh air flow through and “T” didn’t check before he went to bed I guess. The wind in the night would have caused this damage.

Michael – I give you this as my last “offering”, I do not have the strength to do anymore, I want peace.

My cousin Julie died young (30). She always loved “Sting”. Her favourite song was “Fragile” which was played at her funeral at her husbands request. Her little boy Ryan 2 yrs old (at that time) was also at his mums funeral.

First, I am terribly sorry that those emails were posted in the first place, they were private emails between me and Dr. Wymore and I had no idea, am soooooo tired that I had no idea they were attached. I apologize to each and every one of you.
I am deeply sorry for you having to suffer through my emotional outpouring to Doc but I told Cindy that I could not take the stress of his stress while she unfortunately was away in California. I didn’t understand it, I still don’t understand it, I still never got an answer as to what the anger was all about….I simply wanted to make creating this beautiful event not just business, but a joy and it became impossible and I became frustrated. Unfortunately, it got very heated. And more unfortunately or most, was the loss of any communication between Chas and I as it was so very crucial for completing this vision. I agree, this has seemed from the very beginning to be Divinely blessed and even more good things happened today which I’ll address later, donations, the article, the Current Magazine here in Tahlequah and I may need help with fallout from the Oklahoman because the author just called and said they’d been deluged with requests to speak to me. He said no one was hostile, just had symptoms.
Back to subject. What you are seeing is pure venting that I feel comfortable enough with Doc to do. I did not know where else to turn, I don’t need kudos, or pats on the back during every communication, but I have certainly gone out of my way to do so with those whom I communicate with and that is purely my business training and background. I simply don’t know what to say. I am embarrassed. Tho not ashamed because that was what I was feeling and I still am quite confused as to what the issues exactly are/were. I truly believe I did my level best to try and work with Chas on many occasions and through Cindy which shouldn’t be required in a mature business relationship, to no avail. I’m a pretty easy person to get along with. I don’t blow or take action unless provoked. I don’t stir up trouble and try to keep to myself unless I feel it is an issue regarding this cause that requires cooperative or immediate attention. In essence, no, I don’t need to be ‘stroked’ as was suggested in certain emails. I am not attempting to defend or object, but describe my position. I felt cut off, abandoned in this project and I did repeatedly simply request respect and typical professional tact. During one of our phone calls there was much verbal disturbance on the other end that my husband heard from the other end of the house and yes, he did indeed threaten Chas. He had heard too many of these exchanges and only he, I, Dr. Wymore and several close friends new how sick I really am…..I explained this to Chas that this was why my husband was so overprotective and upset and he had seen me working from the moment I woke up at the computer with the phone pasted to my head until he would wake me up passed out at the computer or I wasn’t sleeping at all. He is very fearful for me, I simply want to keep working together and moving forward to find a cure regardless of what my personal outcome might be.
So please accept my apologies all, this truly was personal information not meant for anyone but me and Doc and we have a relationship in which we can vent and share our feelings without judging or necessarily acting, just sharing of emotion.
I will do ANYTHING for this cause. Truly. I will work officially, unofficially, for and with anyone that is moving this cause forward but I feel that we ALL deserve one simple thing that has been so sadly lacking in most, if not all of our situations…..respect. Not glory….NO, respect. It’s just the way I was raised! I don’t know how to communicate to a person any other way during a business transaction and not receiving it in turn was very upsetting and confusing for me……and it WASN’T a Morgie moment. What is missing here, almost like LB, is the OTHER side of the conversation. I’m not trying to continue this, I’ve wanted it over from the moment it started, but I DID take some abuse. And yes Greg we do have very, very strong personalities. Oddly enough, I find that most patients DO. At least those that stay and go along for the wild ride of dealing with education, politicking, fundraising, communicating, etc. We are all type A overacheivers. But the best advice I heard during this entire ordeal came when my husband told Chas just to treat me like a man. A strange thing to say indeed but given that I have 3 older brothers, 9 nephews, 2 sons, grew up in a family that owned a development company and worked as a business executive in a field where women were not even allowed the position until 1984, I am not a typical ‘woman’. I don’t need coddling. I desperately want communication whether Chas cares for me or not. But as of this writing, he still will not speak to me on the phone or other than a few words by email….. I don’t need to ‘chat’ as suggested but I do need an exchange of information and a response when a response is direly in need. I have repeatedly asked Chas to return my husband’s bio to the MORE JAMM page and he will not do so. Again, I don’t know why. Paul has apologized and as far as I knew everything was settled to the point that although I did not find it to be satisfactory communication it was moving forward. These emails are outdated and again…….meant to be private.
Greg, you have always taken the time to say a kind word, but then again, you KNOW the hell we live with. I don’t even need that much kindness, you have been very gracious! But hateful words, constant cursing, accusations of being like Mary….oh it just goes on and on and doesn’t need to be re-hashed here (those emails are missing but I will gladly provide them if anyone wants to see my point of view!) got to be too much for me to take and was causing me to despise the very project that was so dear to me and gave me such great joy.
I don’t know what else to say. I will not say that I am sorry for the things I shared with Randy because I am not. He is a dear friend and I can count on him for discretion and guidance. They simply were a safe place for me to vent MY anger when I was receiving it from Texas. Greg, if you can ‘fix’ this one, I’d do ANYTHING, absolutely ANYTHING to make it right and I have offered on numerous occasions to do so, but I have to know what to do ….what I did in the first place, what is irritating Chas, what I can do to not offend him, to not feel that I have to be fearful or tiptoe because I AM frail and very ill and I MUST protect and preserve my health above all else. If I allow this to eat me alive, it will do just that…..quite literally. I am open to any and ALL suggestions and will go out of my way to do whatever Chas needs to make him feel more comfortable in dealing with me or, as you said, if it is that serious, he need not interact whatsoever, but I myself am at an absolute, total loss as to what, why, how of any of this. Just know, I WAS provoked. We are ALL under stress, but we need not attack one another and I repeatedly …..many, many times told Cindy that I was nearing the end of my rope and that one of my number one promises that I have made to myself in life is to never take abuse lying down and without a fight. So as I see it, we still sit at stalemate as I am more than willing to let everything go and try and re-create our relationship but simple things like refusing to add my husband to the website make me just shudder……..this is not mature and I will not deal with it, I don’t have to deal with it and I don’t NEED to deal with it. I am at a point where I am simply finishing what I started and much of the joy is gone. It saddens me greatly and I don’t think any of you ( I don’t KNOW most of you) know how many tears I have shed over this issue. I am tired. I am sick. But I’m a fighter and an optimist. I am crying and I am tired of crying. I should not BE crying when such beautiful things are unfolding before my very eyes as if God is allowing me to watch divinity in action. But my joy has turned to tears and I just am doing my best to get through this until it’s over. What was my love is now my burden. What was my passion is an annoyance. What I anticipated I just want over with. Because of things like THIS. As Chas said…..You don’t know me…..none of you know me. I know ME. And I know, despite my PERSONAL sharings of frustration, I have tried to walk a right path. I may be nearing the end of that path and I wanted so badly for this to be a joyful walk, but it’s just not worked out that way and again, Greg, I am at a loss as to how to change it and so I have turned it over to my God and I don’t try anymore….I only meet with resistance. I’ve BEGGED to know why, what I did, what I could do better and I am still in the dark. And I’ve said enough. I don’t need to defend myself, that’s just more abuse. I did nothing but accidentally attach a private email. I am sorry you had to read it, I am sorry Chas is so stressed, I have asked him to share his burden, yet he won’t. I am ending another beautiful day in tears and I’m so TIRED of doing so.
Best to all,
K

Gill- you asked me if I could call you internationally. I agreed. I also contacted dr. Swhartz and spoke w/ him in detail about this problem and emailed you his response. Now I am supposed to contact NASA? Whats up?

I was watching House. Stealth parasites and communication problems. And a confused young woman with more than a cold.

And regarding Los Angeles, no, other than the one or two “news” segments you familiar with, I’d never heard anyone mention Morgellons, or even DOP.

It’s not as common as some people mention. Sure, if you surround yourself with Morgies, and spend all your day internetting with them, then it feel like the world is full of them. But no, it really just those people you meet on the net, and that’s about it. The rest of the world rolls on. As could you.

Starlink, I am me, Smileykins, and all that I know about your involvement with “morgellons disease” is that your mom had an itchy scalp, and a spot on her face that you witnessed something that you thought was unusual come from. You said to me yesterday, ir the day before, that due to my indifference (?) that your mother was out of the picture, or something to that effect. Are you also having some skin/scalp problems?

Oh, I knew that, MG. It was just those letters that what’s-her-name posted, that she’d gotten from Mary Leitao, to give to her doctors, that irked me when I read both of them. Morgie people will see those, like everything else, and swallow it down whole. She even said some BS about what Wymore had found in “specimens”. I posted a question to Jace about it, but I don’t figure she can respond to it.

I THOUGHT I WAS YOU
now i know its true
“online together…
no matter,
what weather…
singing our songs
to the wind….”
carbon based life form, quorum sensing bacteria, alternative cellular energy pigments; acting as capacitors….

I bet, it is us Morgi’s. Who else? Nobody else cares about this disease.

I decided along time ago I would never go there again. I have a choice. I saw what it was about and looked
2 or 3 times. That was enough. Why should I go there? I don’t care WHAT they print. Different words, same message(bull shit)

If everyone went there as much as me, they would already be gone. They will go away when you don’t need them anymore. Somebody please write me and tell me what you get out of it? I really want to know. W H A T ????

MorgellonsWatch obviously fills a need. Bend over and kick yourself in the ass, don’t give them the pleasure.

i guess, until one suffers florid episodes of delusional mania, coupled with intensely pruritic blisters; which turn into lesions; which we know are associated with the fibres….there is a mystique surrounding the debate with open discussion frequently derailed by verbose pomposity from those who deny/ decry the obvious suffering, both mentally and physically, of the victim, can one have an inkling of the pain.

Lyme borreliosis caused by the spirochete Borrelia burgdorferi is now the most common vectorborne disease in North America, Europe and Asia. It is a multisystemic infection which may cause skin, neurological, cardiac or rheumatologic disorders. The aims of the present thesis were: (i) to develop a PCR assay for direct detection of B. burgdorferi DNA and to evaluate the diagnostic utility of PCR in clinical specimens from patients with Lyme borreliosis and (ii) to study the taxonomic classification of B. burgdorferi isolates and its implications for epidemiology and clinical presentation. Laboratory diagnosis of Lyme borreliosis by direct demonstration of B. burgdorferi in clinical specimens would compared to current serology allow (i) optimal specificity, (ii) increased sensitivity during the first weeks of infection, when the antibody response is not yet detectable and (iii) discrimination between ongoing and past infection. Due to the extreme paucity of spirochetes in clinical specimens neither in vitro culture nor antigen detection had yielded a sufficient diagnostic sensitivity. Thus the recently introduced highly sensitive PCR methodology could be a solution and was thus studied. Assays for PCR amplification and subsequent identification of B. burgdorferi specific sequences were established and used. For all assays the analytical sensitivity was a few genome copies using purified DNA as template. The efficacy of PCR was initially evaluated using tissue samples from experimentally infected gerbils in order to start with biological samples a priori known to contain B. burgdorferi. B. burgdorferi DNA was detectable in 88% of the specimens. Thus the diagnostic sensitivity of PCR was comparable to and even higher than in vitro culture. PCR was significantly more sensitive than a histological B. burgdorferi specific immunophosphatase-staining method. The utility of the PCR was then tested for identification of B. burgdorferi DNA in skin biopsies from 31 patients with erythema migrans. The sensitivity of PCR was 71%, which was superior to culture and serology. Based on own and otherwise published results there is clear evidence for PCR being the most sensitive and specific test for detection of B. burgdorferi in skin biopsies from patients with both early and late dermatoborreliosis. However, since the clinical diagnosis of dermatoborreliosis in most instances is easy, an invasive procedure as a skin biopsy, will only be justified in patients with an atypical clinical presentation. The most frequent and serious manifestation of disseminated Lyme borreliosis is neuroborreliosis. PCR was applied to 190 patients with untreated and confirmed neuroborreliosis. B. burgdorferi DNA was detectable in 17-21% of CSF samples from patients with neuroborreliosis. In patients with very early neuroborreliosis (

What is Quorum sensing and how do bacteria talk to each other?
The discovery that bacteria are able to communicate with each other changed our general perception of many single, simple organisms inhabiting our world. Instead of language, bacteria use signalling molecules which are released into the environment. As well as releasing the signalling molecules, bacteria are also able to measure the number (concentration) of the molecules within a population. Nowadays we use the term ‘Quorum Sensing’ (QS) to describe the phenomenon whereby the accumulation of signalling molecules enable a single cell to sense the number of bacteria (cell density). In the natural environment, there are many different bacteria living together which use various classes of signalling molecules. As they employ different languages they cannot necessarily talk to all other bacteria. Today, several quorum sensing systems are intensively studied in various organisms such as marine bacteria and several pathogenic bacteria.

Why do bacteria talk to each other?
QS enables bacteria to co-ordinate their behaviour. As environmental conditions often change rapidly, bacteria need to respond quickly in order to survive. These responses include adaptation to availability of nutrients, defence against other microorganisms which may compete for the same nutrients and the avoidance of toxic compounds potentially dangerous for the bacteria. It is very important for pathogenic bacteria during infection of a host (e.g. humans, other animals or plants) to co-ordinate their virulence in order to escape the immune response of the host in order to be able to establish a successful infection.

More from the nice guys at Nottingham, they are doing research Btw.
read on folks…
.
“Do all bacteria use the same signal molecules?
Different bacterial species use different molecules to communicate. There are several different classes of signalling molecule (see examples). Within each class there are also minor variations such as length of side chains etc. In some cases a single bacterial species can have more than one QS system and therefore use more than one signal molecule. The bacterium may respond to each molecule in a different way. In this sense the signal molecules can be thought of as words within a language, each having a different meaning.

Can bacteria from one species communicate with those from another species?
There is evidence that interspecies communication via QS can occur. This is referred to as quorum sensing cross talk. Cross talk has implications in many areas of microbiology as in nature bacteria almost always exist in mixed species populations such as biofilms.

What are the benefits of quorum sensing research?
QS research has many potential applications, most of these involve controlling bacteria by interfering with their signalling systems. For example many bacteria rely on QS to control the expression of the genes which cause disease. If we can block the QS systems we may be able to prevent these bacteria from being dangerous.”

it is why garlic is such an effective prophlyactic against this scourge…
Upsets the QS ability via the flaviniods in garlic

And regarding Christians, it seem they are indoctrinated to believe without evidence. Abdicating reason.

John 20:24-39

Now Thomas (called Didymus), one of the Twelve, was not with the disciples when Jesus came. So the other disciples told him, “We have seen the Lord!”
But he said to them, “Unless I see the nail marks in his hands and put my finger where the nails were, and put my hand into his side, I will not believe it.”

A week later his disciples were in the house again, and Thomas was with them. Though the doors were locked, Jesus came and stood among them and said, “Peace be with you!” 27Then he said to Thomas, “Put your finger here; see my hands. Reach out your hand and put it into my side. Stop doubting and believe.”

Thomas said to him, “My Lord and my God!”

Then Jesus told him, “Because you have seen me, you have believed; blessed are those who have not seen and yet have believed.”

Do not believe because “it is written” (on the internet). Demand both evidence and rational thought.

dang, i say dang
i meant to say silicone
gotchya…..
——————————————————————————–
Silicon life might look like animated crystals, as in this drawing from Dickinson and Schaller. Structural elements could well be in threads, like fiberglass, connected by tensor elements to create flexible, delicate, possibly even filmy structures
——————————————————————————–

Michael, I’m sorry I’d misunderstood, and that I was ugly & disrespectful. I’d mistakenly thought that section of your comment was directed to me, since I’d been who’d asked you about ML’s reference to LA, under the Hystorical Context topic. I was wrong, and I apologize to everyone, but especially to you.

That January 26, 2005 letter of her’s, posted under that topic’s comment #453, is just so absurd. Back around the time that letter is dated, I’d thought most of the propaganda seemed to be that the Bay Area was where a large amount of “victims” were, rather than LA. That comment also said (not in ML’s letter, but just within the comment), that when Randy Wymore first became involved they had found, “Cyanobacteria, barbs like in tapeworms, hookworm, anthrax, leprosy”, from patients’ specimens. Look at this other silly remark that she included in her letter, “A neurosurgeon who recently performed Ulnar Nerve Release surgery on a patient with this disease, remarked that he had only seen this type of severe nerve damage in people with Hansen’s Disease”.

I can only imagine the look on doctors’ faces as they read from those letters, even though the intent of the letters is “actually” meant to be helpful.

Morgie people, concerning planning a class action lawsuit against the CDC, please consider whether you’ve cooperated with their instructions and gone to your local health care providers. Focusing so much negative energy on the CDC, and not on what you could be doing to assist yourself, is counterproductive. It may be a bonding experience, but you need to take care of you, for you, and for those you care about in your real world. Have you been told, through “the busy leaders of your disease”, to seek assistance through your county health department, if you can’t afford a doctor? Ask yourself what they are so “busy” doing. If you can manage some time away from your research, go visit the web site of your local health department, and look around there. As an example, just look at the new division of LA county’s Department of Public Health, and how nice it is.

On May 30, 2006, the Los Angeles County Board of Supervisors approved separating Public Health from the Department of Health Services, creating a new Department of Public Health. On July 6, 2006 the Department of Public Health was formed. Both the Department of Health Services and Department of Public Health will work closely together to provide the best possible care, services, and to protect health, prevent disease, and promote health and well being for all person in Los Angeles County.

P.S. MG, I’ve always noticed that there are some morgie people who do say things about God. Some of them post prayers in message board comments. Some email chain-letter prayers, and some quote scripture, too. I’ve seen several morgies say that they don’t believe in satan, but I don’t know if that implies that they don’t believe in a god. I only know what I read from their words. There is a gigantic difference in just believing there is a God, and in being a Christian. Saying things about God, however He is perceived, is not the same thing as knowing Him.

Hi, Al. You had just said in a recent comment, that clear incisive thinking is needed.

You acknowledged it!!! Get yourself back inside-the-box, where the answers ARE!!!

Al – if you gave a damn about the real health of a real sufferer, why the hell did you not reply to my email. I thought you told me to stay away from the yanks, don’t play their game.

Well let me tell you Al and anyone that comes to this website. You WILL be programmed and YOU WILL be controlled. I know that because this is what this BLOG SITE has done to me.

This blog site has caused me nothing other than distress, hurt and people ganging up on me. Now do you MICHAELLLONS think that is fair? Well you obviously DON’T because you are the friggin clown behind the curtain pressing the buttons.

Well idiot the insanity will stop for ME because I refuse to partake in your ramble any further. I will post if I feel I want to, but not to enter in your hidden agenda and your programming skills.

Al – if you have this disease, well then why the hell don’t you try to HELP?

btw i read the email just now im sorry that you suffer as you do
but the email was adressed to”greg” please understand i have had this condition 10 years the answers unknown the questions rising exponentially, i can only say garlic will help..

Yet Mr. Dimmesdale would perhaps have seen this
individual’s character more perfectly, if a certain
morbidness, to which sick hearts are liable, had not
rendered him suspicious of all mankind. Trusting no
man as his friend, he could not recognize his enemy
when the latter actually appeared. He therefore still
kept up a familiar intercourse with him, daily receiving
the old physician in his study; or visiting the labora-
tory, and, for recreation’s sake, watching the processes
by which weeds were converted into drugs of potency.

For some people, lies ground them better than truth. It’s just that simple. A little bit of truth came to one morgie, and rather than being able to bend with it, it made her snap and break. I had just said to TC that she needed ML, before she said she did, herself.

Michael – to add to the other posts, you are a complete idiot. I would love to be at the More Jamm but I am not sure if this will be of use to me or this disease. Maybe if I fly to the USA I will be bumped off. Someone is sure tryin do that to me.

The only person guiding my spirit Michael is GOD. So you don’t believe well fine, you are on your own mate, do you hear me?

You have slowed down work done by GOOD people to stop the suffering, but you and your bright ideas and bullshit has brought me too close to the brink of death too many times.

I came here for help because I had no one to turn to. Mary Leitao will not even reply to my emails. So if you want to gang up on anyone please be my guest and direct all your anger and questions at the lady that started this disease to begin with.

No, I really think there might be something to the correlation. A propensity to believe without evidence might lead people to make poor health choices.

Although a lot of Morgies profess to believe in God, and probably do, they aren’t necessarily Christians. There is a very big difference. Real Christians have the Holy Spirit dwelling in them, and that is more an adequate evidence.

Believing in God isn’t enough to bring deliverance from the deception of Morgellons. Trusting in Christ is. In my opinion, Morgies generally fail in this area.

We want an end to this rubbish. Websites sucking our every bit of energy, because certain people want this to drag on and on. Research is being done the entire time. I don’t care who is the major player in this mad mess, I just peace from this suffering along with the other true sufferers, friends of mine – Dr Smith, Chas & Cindy.

These are real people, they care, not like a lot of you. I can not name you because I don’t know you. I do know people that have touched my heart and I have touched theirs in return.

Morgellons will come to light for the public to hear the true suffering of a Morgie. This will be done with the spirit of the Lord through each and everyone of us.

Al-
There is no way to do a PCR test if you don’t know the sequence you are looking for. PCR can only test for known DNA sequences such as those from the paper on borrelia. That gene had already been sequenced, so all they were doing was seeing if it was found in the patient samples. If you would like me to explain it in more detail I’d be more than happy to. This is not an attack against you, I just want everyone to understand the science that they’re quoting.

TC – Since you are so “Anti” Morgie. No one would let a little animal suffer what we suffer. This isn’t about religion okay. This is about people, children and their animals ALL suffering at the very same time. Living in different delusions, different realities, living an illusion, awakenings, revelations.

Well this is all far and well for the audience, but this is very painful to a sick person. Who has a clear thinking intelligent mind, but is struggling greatly under the pressure. The only way to discribe this is like being strangled.

Also Tallcotton – that last post was not just meant for yourself, but for the readers also. I don’t know anything about you or your reasons for being here. All I know is what I have and that is what I describe.

What are you people going to do after the CDC releases informations stating that Morgellons is NOT a disease. Are you going to stand firm with your futile proclamation, or are you going to give in to the truth and listen to your doctors?

I can answer that one, TC. Nothing is going to change, because I think it looks pretty evident that certain types of people need this to ground them. Impenetrable denial, so sadly, is a safe place for some, and “morgellons disease” is something to occupy a space, giving them something to hold onto, and look ahead, towards a future. That promise, apparently, has to be much, much, better than medication.

The media is already burned out on the Morgellons story. At the present time, there’s nothing left to tell. The Morgellons movement never did raise much money, and it will raise even less after the CDC declares Morgellons to be a non-disease. I seriously doubt that OSU will continue funding research after that. ML gave the Morgies a pony to ride on, and a parade to ride in, but from here on out, they’re all whipping a dead horse.

TC, Smiley I see you have way too much time on your hands and are capable of typing alot of words, but your not saying anything to help anyone. These folks with the “thread disease” are suffering and you are laughing at them. Those who care about this condition are laughing at you for your indifference. You have ruined any creditability you thought you might have had. You laugh at people that are dying and think your grand for doing so. Thats sad. I pity you. You really should get off the meth. Dillusions of grandier is a serious mental condition. Impenetrable denial HAH!. you are in the one obviously in denial. “certain types of people need this to ground them” is another one of your most stupid statements ever. Why do you monitor this site ALL THE TIME?. Get a life. Better yet, try to help people, not kick them when they are down. You are a puny, little sick parasite. Think about it, you gonna tell your grandkids what a great job you did of DOING NOTHING with your life.

I’m not going to help people propagate a lie. There is no “thread disease”. I don’t laugh at people for dying. I laugh at liars that say that Morgellons is a deadly disease. There is no Morgellons disease, by any name, and there’s certainly nothing wrong with my credibility. I’m not here for you, unless you’re here for the truth.

Um Al-
Was that denial comment directed towards me? First, I was just trying to help you, and if you were talking to me, what am I in denial of? PCR? Nope- it’s part of my job. I know exactly how it works and what it is capable of. I just wanted to help with something that I know quite a bit about. Sorry if I somehow offended.

Well look, it’s crystal clear, from the accounts all over the internet, that many see things just about exactly like TC & I had when we were delusional and hallucinating from our similar, separate, causes, from time gone by. It’s obvious, too, that some people have also got self-injuring compulsions. Some have probably got both, since anyone who wants to claim “morgellons disease” as what they have, can, and there seems to be a lot of scratching, rubbing, picking, and probing involved, as well as some other things along the way. Fibers are a fact of life. If they’re bothersome, you are in need of fixing it, so that they won’t be.

The personality/behavioral/mental disorders are rife on the internet too. It’s all excused, by blaming it on the “disease” causing it, not the other way around. People aren’t hidden from view concerning this topic. Anyone that clicks onto anything with the words “fiber disease”, “unknown skin parasite”, “morgellons disease”, you know all the web sites and forums, and heck, even head lice and scabies (which are real treatable and curable, but they’re onboard too), all have the same stories.

That crap Al tried depicting, and you did too, Norman, as TC’s having made some sort of fun of a grieving mother, was a ton of bullshit, as anyone who visited the link Al provided could read down through, and see. It was misdirected anger, with the people above TC’s little post having been the ones making the real fun of “morgellons disease”. TC wasn’t saying a damn thing relative to what Sue said. She needed to vent, and picked TC’s post to react to, and twist, to suit her needs. That was fine. Norman made some very rude comments in relation to the loss of a life, later on, though, that were pretty uncouth, but that’s fine, too.

Everyone realizes that some people have OCD, paranoia, schizophrenia, and they have their reasons for needing this, as you can see so clearly when you drop into certain message boards. It seems to give them purpose, almost. Now come on, nobody can pretend to know what anybody is going through, especially all of you people who think, beyond the shadow of any doubt, that you all have the same symptoms. Everybody needs to trust their doctors, like we have been saying, and you need assistance when you go to appointments.

How you arrive at the conclusions that we’re making fun of you is evidence of the scope of your illness. We are saddened. When you bring yourselves here and carry on with us the ways you do, yes, we may try to humor you, sometimes, or to set you straight on things without receiving much cooperation, but if you think we’re equipped at handling these behaviors, I think we can all assure you that we’re unaccustomed to it.

If you can’t take care of yourselves, and think that this big illusion of complete strangers over the internet provides the answer to your problems, if that is what makes it more bearable, then that is fine. If you are happy not being in possesion of a soundness that many people have, good. I’m not saying you need to change.

Norman. I am a firm believer in promoting understanding and resolving conflicts. If you perceive that I have prejudice towards something, you misunderstand. It probably stems from your being so secretive over your reasons for believing that your mother has “morgellons disease”, so won’t you help resolve that, to promote a better understanding?

Gene insertion was done using a gene gun (particle bombardment). Kirk, who has an undergraduate degree in biochemistry, understood this to be “a kind of barbaric and messy method of genetic engineering, where you use a gun-like apparatus to bombard the plant tissue with genes that are wrapped around tiny gold particles.” He knew that particle bombardment can cause unpredictable changes and mutations in the DNA, which might result in new types of proteins.

The scientist dismissed these newly created proteins in the cotton plant as unimportant background noise, but Kirk wasn’t convinced. Proteins can have allergenic or toxic properties, but no one at Monsanto had done a safety assessment on them. “I was afraid at that time that some of these proteins may be toxic.” He was particularly concerned that the rogue proteins “might possibly lead to mad cow or some other prion-type diseases

When Kirk tried to share his concerns with the scientist, he realized, “He had no idea what I was talking about; he had not even heard of prions. And this was at a time when Europe had a great concern about mad cow disease and it was just before the noble prize was won by Stanley Prusiner for his discovery of prion proteins.” Kirk said “These Monsanto scientists are very knowledge about traditional products, like chemicals, herbicides and pesticides, but they don’t understand the possible harmful outcomes of genetic engineering, such as pathophysiology or prion proteins. So I am explaining to him about the potential untoward effects of these foreign proteins, but he just did not understand.”

All I want to know is why Norm thinks mama has “morgellons disease”. He’d said she dropped out because of my “indifference” the other day.
How can anybody expect to achieve understanding when it isn’t even hoped for?

Well, okay. Logically, then, I know of a morgie that had silicone implants. So, I wonder how many have, and think that “morgellons disease” is to blame all those symptoms on. Anything else relating to silicone, nah, pretty irrevelant.

let a morgie-friend reiterate. I dont want your understanding or your dumbass comments. I want some DNA testing. Can you help in that endeavour? I Really dont expect anything else from you but your same stupidity.

Thanks. But, Al, why do morgie people think they have to go so far with thinking outside of the box? You know, I did that, myself, for a short spell one time. I know how that felt, and I know the reason why I did it. I’d looked up parasites and bacteria of all sorts, but I didn’t go on into it as far as most morgie people do, because my health was continuing to take a nose dive, while I was trying to figure it all out, reading, and reading, and reading. Do you think you’ll ever be able to reach a point where you can think inside of the box, where all the answers are, and help yourself, by looking at human anatomy and restorative health measures, or real diseases and conditions? They’re just as interesting, and actually lead somewhere.

How did you misspell it, “Dillusions of Grandier”? Well, Morgies are that, too, for sure. They’re gonna find a responsible party, win big lawsuits, doctors are gonnna hang their heads in shame, relatives that rejected them, thinking they were crazy, are gonna beg them back into the fold. If that isn’t Delusions of Grandeur, nothing is. But, you’re also DOP. And if you wan’t a second opinion, you’re NUTS, too!

Norman, I’m accustomed to people standing by their words, and owning them. You accuse, and label, people, directly, with some things you aren’t backing up, including saying I’m prejudiced. Please consider how you’re repeating that you don’t want any understanding, and such other things as you’re saying. Is that not a source of true problems in you daily life?

“How did you misspell it, “Dillusions of Grandier”? Well, Morgies are that, too, for sure. They’re gonna find a responsible party, win big lawsuits, doctors are gonnna hang their heads in shame, relatives that rejected them, thinking they were crazy, are gonna beg them back into the fold. If that isn’t Delusions of Grandeur, nothing is. But, you’re also DOP. And if you wan’t a second opinion, you’re NUTS, too!”

Let’s get something straight. I’m not condemning you by saying that you are NUTS. I’m just stating the facts. You need help. Go somewhere and get it. I don’t condemn anyone for being mentally ill. I feel sorry for you.

Exactly, Norman. That is what we have been trying to tell y’all. You’re too vulnerable and don’t know what to think. You’re all always pleading for help. Some of you almost think you have personal hotlines with the CDC, and things along those lines of thinking. Those are delusions of grandeur, demanding someone fix whatever is the matter with you. Doctors are at your disposal, but people haven’t listened to them.

Al, that is just it. You aren’t wanting to try gaining anything of any value for yourself. Unfortunately, when morgie people come here, all of you do prove something. I know it isn’t what you want to prove, but you do, and we try so hard reiterating for you to not be concerned about this blog. There isn’t any need to think that anyone is taking anything away from “morgellons disease” for the people who think they have it. Norman said earlier this evening, that we had stood in the way of research, or slowed it down, somehow. No we haven’t.

well how could you effect the outcome?
im ill, sore and fit all known criteria
in tasmania, now i also know how it was transmitted, so i suggest that you and tall cotton know something we dont; i.e. how to cure it, but instead all you 2 do is say how sorry you are for us being crazy?
who is obsessive?

well how could you effect the outcome?
im ill, sore and fit all known criteria….
…in tasmania,thats a long way from u guys, now i also know how it was transmitted, so i suggest that you and tall cotton know something we dont; i.e. how to cure it, but instead all you 2 do is say how sorry you are for us being crazy?
who is obsessive?
and….
tell us how you eliminated these fibres, coz its easy to find the blogs in which you categorically state that you had them?

i give you my first post on this sad little site
al Says:
July 27th, 2006 at 7:51 pm
well, as an australian morgellons suffererfor eight years i find your banter pathetic, but mildly ammusing. To see so many preening self righteous individuals concocting a cover for there crimes. i know exactly the mode of transmission fellows…brethren, templars……its by your handshakes, you pathetic disingenous goatfuckers…same modus operandi the world over, you believe the power of your ascribed beliefs, but its a big wheel that doesnt do a full circle, and to the keepers of these poisons (the church) i say your days are numbered and yes of course your souls are smut

Smileykins Says:
July 27th, 2006 at 8:16 pm
Simplicity is the answer to all complicated things.

tallcotton Says:
July 27th, 2006 at 10:48 pm
Al, you’re a fool!

Smileykins Says:
July 27th, 2006 at 10:50 pm
I was laughing with TC, telling him I didn’t mean that above statement I made, but I didn’t finish my thoughts when I’d posted it. I was only meaning it pertaining to each individual who thinks that they have “morgellons disease”.

The big mistake is calling Morgellons an “it”. People who think they have Morgellons are merely that. There is no Morgellons, but people do have a large variety of different ailments. Some may have multiple ailments. “Everyone” has fibers. If you want them to go away, quit looking for them. Go to your doctor. Follow his advice. Quit obcessing over a disease that doesn’t exist, but treat what you “really” have. I joke around a lot, but I do hope you get well.

Smileykins Says:
July 27th, 2006 at 10:50 pm
I was laughing with TC, telling him I didn’t mean that above statement I made, but I didn’t finish my thoughts when I’d posted it. I was only meaning it pertaining to each individual who thinks that they have “morgellons disease”.

now guys,
correct me if i am wrong…

but
a/ does smilykins have to report to TC?
b/is this the first time smilykins has’nt meant what she said?
c/if so, what of her credibility?

yo bro…
i need da man..
da ice man…
my skin man..
real bad man….
ice man…
i need the
iceman..
break it down
yo
dont go the mo with me bro
get the ho
to see da man
de ice man he gonna get ya
de ice man he gonna see
de ice man he gonna help me
just u wait and see
da ice
it never
leaves me
i just cant be free
of the effects on my brain
and what its done to me

but
a/ does smilykins have to report to TC?
b/is this the first time smilykins has’nt meant what she said?
c/if so, what of her credibility?

Well, Al, I had said, “Simplicity is the answer to all complicated things”, in that old comment, and then I’d gotten the giggles after I thought about what I’d said, because I’d only meant it in the context of what people think is “morgellons disease”, and how to solve their own problems. It sounded pretty funny to me after I posted it, and, so, I explained how I’d meant it.

a. I don’t see that as “reporting” to TC, my fiancee. He knows I’m often on the dingy side, and we laughed
b. I clarified the context I’d meant that in
c. My credibility isn’t an issue, not with me, at least. I’m just a person posting on a blog. Some people, like you, have that odd credibility hang-up. You should be concerned about the leaders you all follow and their motives and credibilities

You guys are personally making fun of a man who laid in a coma for two weeks with brain hemorrhage and nearly died. You know this too, from reading his blog, and that he quit using meth because of that over two years ago. You show your self-worth all the time already, but that’s one that will really get you good.

well how could you effect the outcome?
im ill, sore and fit all known criteria
in tasmania, now i also know how it was transmitted, so i suggest that you and tall cotton know something we dont; i.e. how to cure it, but instead all you 2 do is say how sorry you are for us being crazy? who is obsessive?

All right, Al, if you’d spend more time reading all over Michael’s blog, instead of trying to prove whatever you think you’re trying to prove, you would have seen that Tall Cotton and I know this:

There doesn’t appear to be any one underlying cause for DOP, although it probably has to do with fundamental aspects of brain chemistry. The syndrome is often classified into three types according to the underlying condition:

If simple logic is impossible to apply, and the blame has to be placed somewhere, then “morgellons disease” has become the answer for many people.

We’d both had a temporary state that was induced from underlying physical conditions, so we both recovered, because we obviously had #3 Secondary Organic Delusional Parasitosis. We almost died and we wanted to live.

I have pathology reports stating bi-refringent foriegn material in the upper dermis, i have a lesion on my forearm 40mm in diameter, which has been an infected sub dermal pool, or sinus. these sinuses are full of congealed viscous blood9or mycoplasma} which profusely exudes, with no bleeding after, rapidly healing, oh, the fibres?
out of my armpits nose eyes
ever heard of neuro toxins?
do you like my songs?

Why is the sore not healing? Do you have diabetes, or smoke? Have you had labs done to check for underlying conditions? A systemic condition wouldn’t result in one sore, unless you have a problem with your circulation, and that would occur in your legs, or feet, not your arm. It should be healing. You need to ask why it isn’t.

Excuse me? I was asking you to consider the reason for having one sore. Do you know nothing about problem solving through the process of elimination, Al? I was saying that a singular, non-healing sore (although, you said it has healed, right?), could be related to circulatory problems, you know, like a venous ulcer, but we can probably rule that one out, because they’re more common in the lower extremities. Did you say that it “does” heal, because I don’t know what that means. Can you not leave it alone, because there is something that hurts, inside there, if you don’t remove it? Al, I’m not going anywhere until I decide to.

Al, you haven’t said, yet, but I think you probably need some investigative lab work. There are several people with sarcoidosis who think “morgellons disease” is their main, and only, problem. Do yourself a little bit of good and read about birefringent foreign material. Maybe that arm had a prior accident a long time ago, that you aren’t even thinking about. Tatoos can be problems for some people, too. I think if you can go back, you can figure out how this happened.

Also, Jeezelouise has mentioned how she’s had pieces of glass surface, years later, from a previous car accident. Read this, Al:

Under polarized light, there are numerous birefringent foreign bodies. Somewhat similar material, so-called conchoid bodies, may be found in lesions of sarcoidosis, but generally are not as prominent. In addition, in lesions of sarcoidosis, the birefringent particles are rarely as large as some of these particles. The lesion involved the site of injury in a car wreck; in the accident, the patient’s head had collided with the windshield. The accident preceded the skin lesion by a number of years.

C’MON it’s funny
sorry Michael if i take a rigid scientific philosophy,
but the rigours of objective quantum analytical mtamorhosisogical articulation require assiduous perniciousness to the strictures of the minuate ergo flip flop comments from your expert panel are flakey, soft in the middle,just goo, really, whereas erstwhile my commentary, which by the way, you should pay me for,by the way; sorry was choking from fulminations of mirth, is that a disease?

C’MON it’s funny
sorry Michael if i take a rigid scientific philosophy,
but the rigours of objective quantum analytical mtamorhosisogical articulation require assiduous perniciousness to the strictures of the minuate ergo flip flop comments from your expert panel are flakey, soft in the middle,just goo, really, whereas erstwhile commentary, like mine, which by the way, you should pay me for,by the way; sorry was choking from fulminations of mirth, is that a disease? excuse me

cough cough

ahem

whereas erstwile comments like mine from the wonderfully enriched and splendiferous ogolith
which is the mind of AL………(there should be at this time a pause……}…………….

………………………………AL…………………………………………….
………………………………pAL………………………………………….

But most important.

is,

……………………………..bALance…………………………………………………..
i still call australia home

hey noddy,

i write to entertain, i read to learn

but, in this case, I write to embarrass, to expose, to laugh in the face of bigotry,
“zealous extrapolation from indeterminate interpolarities suggest myriad pathways of expelpoozlejuice from the dongbastion region of the intra skeletal RNA polypeptide zonkometer which in turn correllates strongly with the oblutuous olfactory orifice….(thats your nose NODDY}this synergistic approach to my studies has shown a pathway between the oblutous olfactory orifice and the rear of the gab factory (like your mouth noddy}
DNA from rat pooh strongly suggests a link with the rattus rattus, whereas the DNA from Winnie the Pooh doesnt exist, just like all these neuropytes have strongly assumed for decades, converse tangential existential intergalactic microbes with canofpeaswith mint disorder came knocking at my door i tolde em go away,dont come back no more no more. TC, is your middle name Henry? coz then u culd be THC, or far too much o’ that too?, back to science that natty little topic ……
oops gotta go

The original Noddy stories featured Golliwogs — black-faced woollen dolls. These dolls were popular in the UK at the time the stories were written, but have fallen out of favour and are now often considered racist. The main villains became two goblins named Sly and Gobbo in 1989.”
are smilykins and TC the two goblins? Sly and Gobbo?
i hope not
i must ask biggles

Mr Wobbly Man, he is a funny little man who cannot lie down because of his wobbler and always has to stand up. He doesn’t like it when he turns round and round very fast (by mistake)….
is this really you TC?

Tricky Teddy, a teddy bear and a regular accomplice of Gilbert Golly in mischief. In later adaptations, the pair were replaced by a pair of teddy bears and ultimately by the goblins, Sly and Gobbo.aka smilykins n Tall cottonoski comarade

smilykins a word of critique on your writing stle
please render your sentences
most of what you say is boring goo
use the piquancy{love the word}
to diagram your grammer
please phrase your verbs in a more meaningful manner
in short say less
less often

Michael, I’m sorry for all the posts with Al, and all the typos (OMG, I recall I even used “laid” at one point). He’d have gone on with out me, just fine. He proved the typical way a morgie’s mind won’t even *try* receiving anything that relates to their conditions. He’s about as concerned to know what his pathology reports on his arm mean, as a rock. I can leave them to their house of fun after this. I’m sorry. Michael. If I’d had your blog available to me when I was trying to understand things during those couple of months four years ago, I could have been saved a lot of upset, from getting as bad as I did. I thinkthe category TC and I fell into really makes a huge difference. See, I didn’t know that when I first learned all this stuff about “morgellons disease” last year, and I’m still learning. They just have to be let go.

“Morgellons” is a term used to describe what are purported to be fiber-like parasites of the skin, but after decades of detailed study there is no evidence of an unknown orgnism fitting this description. There is also no evidence that Collembola or Strepsiptera are biologically capable of parasitzing humans. However, there are quite a number of physiological, hormonal and neurological syndromes that will cause these symptoms.

you are a fascist bastard matgellons
its ik i only need to know your bullshit pseudo science is under the scrutiny of those who suffer
you 3 are bullies
this is why i pay it out in spades
btw smilykins shag means laid
oh yeah easy? yeah sure was
i know you wont post this, or if you do y’all want me to forget actually how many posts you actualy do delete u might shut me down, but you will not stop the
juggernaut of truth
nice to get to know you assholes

This only had 305 respondents, but of those, 76% are women, and 80% are in the age range 35-60 (the age range of menopause onset), with the highest number in the 50-54 range – the average age of menopause onset)

Hey tall, In my opinion, dumbasses that dismiss thousands of people experiencing this as delusional is himself not only delusional but suffering from a severe inferiority complex. Please dont kick your dog, thats not nice either. You should see a pysciatrist.

“It is very obvious all visitors to this blog are dealing with people of very limited insight and are extremely biased in their thinking. You and your friends are so eager to be correct you all lie to acheive your goal. Now that is a serious psychological problem. I dont believe you have observations of this to ascertain your beliefs its all one lie after another but their is some decent people here, with good information. Just not you and the cult you belong to. Actually your morgellons groupies! ”

There’s no evidence that thousands of people are experiencing “this”. Whether or not they are delusional depends upon what they believe about what they are experiencing. Their own words mark them as delusional. I’m not biased or limited in my thinking. I just happen to know what Morgellons is, and what Morgellons is not. The only lies on this entire blog are lies told by Morgies. We have truth on our side, and don’t have any reason to lie. It’s obvious, Starlink, that you need the psychiatrist, not me.

“Truth”, either, Norman. I forgot to add that, but it’s all over the place, just like all my typos.
“The Moving Finger writes; and, having writ, moves on: nor all thy Piety nor Wit shall lure it back to cancel half a Line, nor all thy Tears wash out a Word of it.

Smileykins Says:
September 28th, 2006 at 8:35 pm
“Truth”, either, Norman. I forgot to add that, but it’s all over the place, just like all my typos.
“The Moving Finger writes; and, having writ, moves on: nor all thy Piety nor Wit shall lure it back to cancel half a Line, nor all thy Tears wash out a Word of it.

i’m not being facetous just exploring the scientific analysis tangent considering the piquancy of the verbosity; i.e. the underlying implicit
menace, thats nice.
you have diagrammed your sentence almost, but you fail miserably, to impart a sense of omnipotence, whereas it is realy quite banal, ergo sufficiently impotent to get a giggle. Just more verbose goo.
your verb phraseology has an old worlde charm, hence the question, are you god?
Otherwise, the little snippets you so assiduously pull out of your head sound groovy babe. I was impressed with the moving finger
was it heading for your oblutory olfactory orifice next/?

Really, are they your words? or a quote? if it is a quote please acknowledge the source for us dumb asses? ok?

Smiley was just commenting on the permanence of ill-considered keystrokes on the internet.

Omar was more concerned that people waste their lives focussing on “past regrets and future fears”. He warns that life is short, “the bird of time has but a little way to flutter – and the bird is on the wing”.

Consider well your life. Is this daily obsession what you want? To focus on your past and future ills is your own choice. To sideline those ills, and focus on your life, is still within your power.

Seems like this site has ground to a stop. HAHAHAHA, You deserve worse pest.

A pestilence is a term nowadays used for any virulent and highly infectious disease that can cause an epidemic or even a pandemic. The word can also be used about parasites causing large scale sickness and death, such as Guinea worm.

Diagnosis is usually made by seeing the adult worm protruding from a skin sore.

Who is at risk for Guinea worm disease?

Anyone who drinks standing pond or well water contaminated by persons with Guinea worm infection is at risk. People who live in villages where the infection is common are at greatest risk.

What is the treatment for Guinea worm disease?

There is no cure. The only treatment is to remove the worm over many weeks by winding it around a small stick and pulling it out a tiny bit at a time. Sometimes the worm can be pulled out completely within a few days, but the process usually takes weeks or months.

No medication is available to end or prevent infection. However, the worm can be surgically removed before the wound begins to swell. Antihistamines and antibiotics can reduce swelling and ease removal of the worm.

What complications can result from Guinea worm disease?

During the time that the worm is emerging and being removed, the affected person suffers intense pain and often cannot work or resume daily activities for months. Farmers cannot tend their crops, parents cannot care for children, and children miss school. Even after the worms are gone, people are often left with scarring and permanent crippling. Infection does not produce immunity, and many people in affected villages suffer the disease year after year.

Also, ringworm is not a worm, but a fungus. Ya know what? My daughter and I used to get spots of ringworm, quite often, years ago, that bothered us and had to be treated. We still get tiny little spots occasionally, but, I guess since we control the urge to itch, they just flake off and go away instead of worsening and spreading. I honestly don’t know why it doesn’t bother either of us anymore, it’s peculiar.

Just so there’s no confusion, readers need to understand, when I say that I know what morgellons is, and what it is not, that I don’t believe Morgellons exists. Now, right or wrong, that is my belief. So that narrows things down considerably. I believe that the people that think they have morgellons, have a variety of different problems. I don’t say that to insult anyone’s intelligence, or to undermine their misery. It’s just what I believe.

How do you do it, day in and day out, Starlink/Houston/Norman/Al .. obsessing and obsessing not only about your physical health, but about this blog?

Why is this site, which you constantly scoff at, so threatening that you simply must post over and over and over again, every single day?

As for myself, and not that I have to account to you for my activities, I’ve been busy lately working at my job, helping my parents pack up for a move out of state, and contributing to a local effort to restore an unendowed cemetery.

hi gillian, lol i like noddy, was just using it to give TC something he might understand
oh morgellons news?
i got some lil sqidgy fibres comin outta my eyes n nose……hmmmm
oh yeah also have an occupational therapist onside asking the doctors the hard questions we have a list
good to hear you actually have a life jeezlouise….you n’ I we haven’t yet crossed horns

i’m looking 4ward to whipping your sorry ass too
we’ll be doing a study on criminal guilt next
I assure you , it will be rigorous, scientific, damning…
Prepare your allocutus, Smily,TC,Margs, n u too jeeze… i accuse you

the unendowed cemetary bit reminds me of the guy who went to a hooker. he got undressed and when the hooker saw his unendowed 2″ peenie she screamed,
“who ya gonna please with that?”
he said “Me!”
sorta reminded me of TC
ok dudes, tomorrow im gonna put foward my prosecution of the case to prove that you guys are part of a cult and wider conspiracy; i.e. an enquiry into criminal guilt………your guilt

and the pyramid shook lol
The all seeing eye has a cataract…….
bye y’all

You don’t even know what you said, Norman. The Stocklholm Syndrome is working like a charm.

It’s a dangerous position to be in when someone’s confused, helpless, and feeling hopeless. Red flags go up and warning bells sound for lots of people, when a stranger says, “Here, let me help you”. Far too many people just don’t receive self-preservation signals, certainly not when they’re in a state of desperation. It seems as though there’s a way of thinking, “Just as long as they believe me, nothing beyond that is required. As long as they don’t ask me questions, they can tell me anything they want to, and I’ll believe it, because they said they’d support me. As long as we all play this game that someone’s really going to take care of me, of ‘us’, that’s all that matters.”

Is that not how it is? That’s sure how it seems! Morgie people have lost their power, somewhere, somehow. People, in general, don’t need to be empowered, because we all already have more than enough. What anyone who thinks they have “morgellons disease” isn’t able to be aware of, is how they use their power. They have no effective techniques to unhook their attention from all their self-hypnotic “research”, and swapping “finds” back and forth, and stories of doom, gloom, and fear.

They’re bonding with others who are in the same state of depair. Misery loves company. Look at what their focus is on, and how deeply stuck in all the muck & mire they choose to remain. Their power is negativity, only. That’s not power. So, they’ve entrusted themselves into the care of complete strangers whom they’ve been led to believe will solve all their problems for them. No, you may say? Um-hmm. “Morgellons disease” is being held onto in celebration, it seems, and guarded like a precious jewel.

Why? Well, it looks obvious. The answers for each individual concerning what “morgellons disease” is, is the reason it’s guaranteed to never be found through any “morgellons disease research”. Their imagined stories involving various outside entities as the cause, instead of accurately identifying their uncontrolled imaginations, is something that needs to be treated.

It seems that to fend off the uncomfortable feeling of fear, they have a compensating strategy involving protection from the imagined external foe. That “protection” is promised through the creator of it, and through the research, as well as through attacking anyone who mentions the truth. The foe is literally within each person. It is not something on the outside that was unleashed on an unsuspecting few.

Were it not for morgie people bringing misleading comments to this blog, the amount of comments I make would be reduced significantly. I also don’t take well to their commands to “go away”. It has an adverse effect.

the unendowed cemetary bit reminds me of the guy who went to a hooker. he got undressed and when the hooker saw his unendowed 2″ peenie she screamed,
“who ya gonna please with that?”
he said “Me!”
sorta reminded me of TC
ok dudes, tomorrow im gonna put foward my prosecution of the case to prove that you guys are part of a cult and wider conspiracy; i.e. an enquiry into criminal guilt………your guilt

and the pyramid shook lol
The all seeing eye has a cataract…….
bye y’all

Were it not for morgie people bringing misleading comments to this blog, the amount of comments I make would be reduced significantly. I also don’t take well to their commands to “go away”. It has an adverse effect.

I have never brought misleading information to this blog, only truth.

I have no idea what “Morgellons” is. I only know what I have suffered.

My journey has been filled with misleading information. Always swaying me from any logic or reason.

I tried to adapt logic from the start with my research into my symptoms. I took information on “Stealth Adapated Viruses” by Dr John Martin to my local doctor,the infectious disease specialist and the psychiatrist at a major Melbourne teaching hospital. But no one really took the time to take a proper look. I found the MRF website not long after this and also gave the hospital this information.

It was very clear to me the entire time I was being treated for “Delusions of Parasitosis”. My consultation with the Psych in the Psych/Derm Clinic was so humilating. She had a student for her, on more than one occasion. A young guy I remember at one time. I had a friend with me and he said to me – “did you see the way he was looking at you with the eye roll”. This same Psych. doc had me put in the Psych. unit. I even phoned ML whilst I was an inpatient. I was really quite shocked with her response to me being so distressed at being putting in the pysch ward. She said a lot of people do it for time out.

I didn’t need time out, I knew that myself. I knew something was wrong in my body, very wrong, but physical examinations just seem to fall by the way side these days. A doctors ability to listen also seems to fall by the way side.

I am not a feminist but quite often I have felt many male doctors have undermined my own intelligence, especially when it is my body.

I have lost count of the times I have tried to tell myself that what I am suffering is purely psychological. I know I have outward symptoms, which are terrible and everyone can see them. I have tried this as a way to heal myself from the Morgellons crap.

But it hasn’t stopped. My email box is over run with Morgellons information from people I don’t even know. I must unsubscribe from that group I joined the other day.

How is the Morgellons Texas website going Al & Starlink? I joined – not much happening hey???????

Starlink & Al appearing on this blog has also set more wheels in motion of “misleading” information and further abuse. I can’t understand why.

When people get on the phone to me when things start to hot up on a blog site about Morgellons then I tend to think someone is trying to cover someones arse.

And Starlink you are now thinking of doing the Dr Schwartz programme for your mum. Let me know how she gets on, two weeks you said to me in your email, I think. You still haven’t told me what it actually is, no one has. (See – more misleading information).

You see I just typed that about my email with Starlink and I still don’t understand any of it myself. The whole “Morgellons” hype has done a full circle.

I ask myself logical questions all the time. For instance: Why did Al register with MRF in June? and Why did he suddenly appear on this blog?

Driving out demons and soaking in a hot tub filled with silver spoons is not medicine. Seems more “cult” type behaviour to me.

”It’s a very bizarre kind of symptom… because you can see them coming through the skin.
I think it’s been trivialized in the past….people are starting to pay more attention because there are more and more patients who seem to have it.
There’s a large proportion who are either nurses or teachers.
There is always something that we don’t understand and we’re constantly coming up with new things that we don’t really understand yet…
The CDC has no program to test Morgellons…They’re being a little disingenuous.”
- Raphael Stricker, MD
San Francisco, California

Starlink – I went to your “Morgellonswatch” group at Yahoo.com. I joined, you didn’t look hard enough. How far do I have to look around? I don’t see anyone? Just you.

I don’t see anyone anywhere.

A trial of lies, misinformation, mind control, abuse etc etc

Thousands of people report this disease?

Show me the evidence. I asked for that a long long time ago.

Thousands suffering this disease?

No one seems to be here fighting. No Australian sufferers are emailing me, or phoning me. Why is that? Why do they not reply to my emails?

Why did all these people come into MY life at a set time? Why did they play with my mind and my emotions?

The most sickening part about the whole thing is that I am physical ill.

Mary Leitao will not reply to one single email I send. No matter what I say. What I mean is – I have not abused her once in an email or on the phone. I have copied my shrink and the media with all my correspondence to her. I have tried to phone also.

I sent my sister a copy of the letter from Mr Dan Rutz. She phoned me before and said the letter was nice but nothing more than a “pat on the head”. Not really helpful for you given how sick you are. Her words not mine.

I could never quite figure out why Smileykins always kept changing her story.

Who is guilty of misinformation Smileykins?

Smileykins you obviously love the cult life and the power that you think you have.

You have made a fool of yourself.

You like to call Michael “The Boss Man” but Michael (Michael) has told me on numerous occasions that you and Tallcotton are nothing to do with him.

What is YOUR purpose really in all of this?

Why do YOU keep coming back here?

I have plenty of time on my hands, and I can’t wait for the CDC to give their annoucement, if they ever do.

If you really gave a damn Smileykins you wouldn’t keep allowing and buying into other posts with stupid comments about Stockholm syndrome, other peoples comments about “lets try humilation”, lets try this experiment.

I know I have paranoia with the illness I have, but I learn who to control that. I can read between the lines and I have read a lot. I do have a great deal of trouble absorbing and retaining new information at times, especially when I am dealing with “disinformation specialists”.

No ones story adds up at all. From the beginning of the MRF right up until this blog site. Everything in between has been manipulation and control.

So – when are the media going to JUMP onto something, since they love a bit of sizzle don’t they??

You’re already proven that you are delusional, but you are far worse off than any of us had suspected if you think anything you have said has had any effect on us at all. You’re not a smart person, Al, and you are totally powerless.

You misunderstand Al, the comments are essentially irrelevant to your cause, since nobody reads them. 95% of visitors to this site only read the top posts.

Notice the second most popular post (see second list in the left paragraph). It’s “Fibers are Everywhere”. Nobody is commenting on that post, yet it’s still the second most popular post on the whole site.

I’m telling you this since I don’t want you to waste your time with a wild goose chase. You would be better off addressing the points made in my actual posts, so I can correct errors.

Why do the Morgies have such a hard time understanding that the MRF’s case definition for Morgellons lists so many unrelated symptoms that their registrants could be suffering from a wide variety of different disorders? We haven’t seen any data showing how many people have which symptoms, or that the reported number or registrants are even suffering from anything similar in nature.

There is no Morgellons. There is no conspiracy. There is no coverup. There is no responsible party. There will be no vendication, no validation, and no successful lawsuits. Why do so many Morgies have trouble understanding why the Non-morgies are here? We are here attempting to keep other vulnerable people from becomming Morgies.

The Morgellons Movement is a total waste of time and energy. It’s causing a lot of harm to a lot of people by reinforcing their delusions, encouraging them to ignore their doctors and valid diagnoses. The Non-morgies have been accused of being liars, conspirators, and even evil, when the truth is that we are here to help the few we can, those who aren’t too far gone to listen to reason.

Most, if not all, Morgies are in serious need of psychiatric help. I don’t expect any self-professed Morgie to believe that. It’s true, though. The Morgies are very sick people. Many are suffering from paranoia, delusions of various sorts, schizophrenia, borderline personalities, multiple personalities, child and pet neglect, and the list goes on and on.

Morgies post some of the most ridiculous bs imaginable, and it seems that every one of them are pathological liars. Morgies need help, but they refuse help. Yet they stand in the way of those that are undecided and ready to hear the truth.

”It’s a very bizarre kind of symptom… because you can see them coming through the skin.
I think it’s been trivialized in the past….people are starting to pay more attention because there are more and more patients who seem to have it.
There’s a large proportion who are either nurses or teachers.
There is always something that we don’t understand and we’re constantly coming up with new things that we don’t really understand yet…
The CDC has no program to test Morgellons…They’re being a little disingenuous.”
- Raphael Stricker, MD
San Francisco, California

The 100,000+ hits on this site aren’t about people reading the comments. Those hits are people looking for “skeptical analysis”. Even if Michael turns the comment feature off, he will still be posting his own thoughts and those people will still be coming to read them.

Perhaps you are not clear on the “blog” concept? One thing you might wish to know, the comment sections of blogs are not generally indexed by search engines, so Googling “Morgellons” is not going to bring up all the incredible insights you post here hour after hour, night after night.

However, Googling “Morgellons” will for sure bring up Michael’s posts, which are the top layer of this blog.

That’s how blogs work. All of your rantings in the comment section are futile.

Too bad, that, really. The Morgie mentality is a big part of the picture, and you display it so well.

The people who invented “Morgellons” ? – maybe just to check so I don’t say what I really think about the situation.

Someone is keeping a close check…booby traps are set up everywhere I go on Morgellons/Fiber disease websites.

I see MAFer over at Morgellons Group. Trolling with his 4 + 1 = 5 – would someone care to tell me what the hell that means??

I had quite a laugh last night having a read. I have found even more new theories about what “Morgellons” actually is!!! I have a list now of about 100 conspiracy theories, plus more rubbish. Not my theories – just the total crap which is put on support forum websites.

Morgellons is actually a small bunch of people who got together for their own hidden agenda. Actually the Morgellons victims had no idea of their real hidden agenda, because there were too sick.

I am not talking about the NMO (New Morgellons Order). When I speak of the MRF I speak of the person who started the foundation – Mary Leitao. The very same person who sent me on a witch hunt for the illusive pathogen, knocking me down everytime I came up with a logical explanation for my symptoms.

Sick people are vunerable, simple as that. Grown adults should be responsible for their actions.

I could never quite figure out why Smileykins always kept changing her story.

Who is guilty of misinformation Smileykins?

Smileykins has not changed her story. Morgies often have poor reading comprehension and jump from one misunderstanding to another. Sometimes they also deliberately twist the lines until they appear to mean something they can criticize.

Smileykins is a very honest person, and she provides a lot of very pertinent and needed information. If you don’t need the information, chances are very good that it wasn’t provided for you in the first place, but for some other reader.

Gillian, and others, I would like to make a note that email messages are intended for the eyes of the recipient. Email communication is covered by the Electronic Communications Privacy Act. So, disclosing someone’s email without explicit permission is illegal.

The ECPA covers the interception of email and other electronic communications and relates only to public email service and transport providers, not the recipients of the email. Email you have received is actually covered by the copyright laws (17 USC § 106). The copyright is owned by the sender, and this covers the “expression” of the contents of the email (the actual words). Information within the email is not constrained, unless by explicit joint contract.

Since it is covered by copyright law, the quoting of part or all of an email is subject to the “fair use” provision of the copyright law (17 USC § 107). These provisions are vague, and much weight is given to the expectation and intent of both the owner and user of the material.

I am not a lawyer and the above is for informational purposes only, it may be incorrect, and it is not intended as legal advice. Copyright, wire-tapping, and privacy laws vary by country.

ok guys
hi all
if i wasn’t soo ill, run down, mentally fatigued and psychologically stretched to the limit, I’d be at work, as a carpenter, on $30 bucks an hour.

I’ve had lesions now for 7 years, since my unfortunate acquisition of this vile condition.
My first visible symptom was suppuration coming from my left forearm.
A local GP excised the area, same on lower right forearm…
was sent to a plastic surgoen who wouldnt operate.

to cut a 7 year epic short, after finding single fibres a foot long, thick as a horses mane, clusters of fibres etc etc.
After a recent report from the pathology,which found, “relatively inert birefingent foriegn material” in the upper dermis, my suspicions were confirmed; i.e that the fibres, which i had dismissed for years as being envioronmental contamination on the lesions, I had up to 20,were in fact subdermal.
As a carpenter, prior to that a horticulturalist, my hands are in the frontline. Most days, at work, my lesions would invariably get knocked causing very thick, semi congealed blood coloured substance to rush forth, suddenly stopping. It, is not uncommon then to see a very sharp, sometimes black, fibre, although they are generally of a spirochete nature, barely visible excepting the fact of the bi refringent nature.

cutting to the point, after googling ” hair-like filament” i came across morgellons, I fit every criteria, and I worry about the whole situation.

I will endeavor to find a solution to this dilemma, so as to be able to resume an active life.

I have , what I believe to be a plausible scenario, but as Gillian pointed out, there are 101 different conspiracy theories.

But there are at least 2 known facts:

People are genuinely suffering,
There is a wall of silence

This latter point is of a far graver concern, on a humanitarian scale.

Lets hypothesise,

Let me extrapolate several points;

1: 6 billion + global population
2: possibility of resurgance of superbug,
3: stealth pathogen, with high dormancy
4: rapid, exponetial growth in information and it’s dissemination
5: the known existance of cults, and their behaviour
6: the commonality of symptoms, both physical and psychological

I know I’m wasting my breath, so guys I’ll just try to be well, and happy; and for all my words of sarcasm, I do aapologize but it was in my opinion, neccesary to attempt to throw some light, without prejudice, on the situation.

I find humour to be a fitting mood when there is a crisis, and I dont wanna scare you folks, but there is a crisis, it’s called Morgellons, and i hope that one day soon it will all be over, but alas I fear the worst.

p.s. re: 716. Michael,I would appreciate you excersize your role as moderator responsibly and withdraw the post.

al Says:
July 28th, 2006 at 3:44 pm
well i found the morgellons site after typing “hair like filament” (which is what i been pulling out of my arms for several years, along with lesions pruritis mental slowness etc) it fits my symptoms precisly, in fact, all people who have seen my arms, seen the site actually agree……..i only found the site 3 weeks ago, have been in agony and bewilderment till that time, in fant a pathology report lists “relatively inert birefringent foriegn material in the upper dermis”….and i aint got no cat………

Smileykins Says:
July 28th, 2006 at 4:23 pm
Al, I feel for you, I truly do, but let me assure you, ya ain’t got no “morgellons disease”, neither, aside from havin’ no cat. What ya need to do, is ask your doctor what the lab report means. Also, here is some stuff to assist you, hopefully, because you DO have a lead, afterall, as to your individual problem.

Al, this is a fact. There are some morgie people who have already been diagnosed with Sarcoidosis, yet they have a process going on with their thinking that causes them to be unaware of it, even though they admit they have it. I hope that you don’t have it, but, please, equip yourself with some background knowledge and adequately discuss that pathology report with your doctor.

If you come across anything by searching around in those links I tried helping with, that seem familiar to your symptoms, let me know, too, please?
Keep hanging out here and reading too. You’re funny.

al Says:
July 28th, 2006 at 5:12 pm
thanks lets all be freinds and look 4 a commonsense approach, my dictum has been “make pain yr friend”….excersize, while painful is an active body defense, in itselfthe psychiatric implications r unreal, i “practiced stillnes” 4 2 years to just settle my head after i 1st became unwell, now its for me, whatever the dignosis, coz , as i say , after 8 yrs of precisely those symptoms, i found something, and have been drawn into an, at times, confusing realm of info, and disinfo, trust me smilykins, im a smart guy…its how i survived it all..together, im sure if we put our egos to one side can really understand the factors and vectors and body responses involved but i agree on several things you say….yes , it’s true!!!!lol water water water, zinc, selenium, aloe vera juice and artemesia(wormwood) peroxide is an excellent topical as it only works on affected tissue, i’ve had bottles literely boil and fulminate with fascinating vigour when held bottle first onto a suppurating lesion, interestingly i found aloe vera far too excruciating to bear on the lesion,lemon grass oil acts as an astringent, drying the lesion which will, after sucessive application, peel off naturaly leavinf fresh, healthy skin……affects the spleen, diatomecous earth in suspension to serrate the clusters and cleanse the bowel, magnesium for well being zinc, so important in health, not enough in food, umm thanks for thinking im funny lets hope that whatever is going on these sufferings, whether delusional and psychosematic eliciting these bizarre, but hauntingly familiar symptoms, remember, im thousands of miles from u guys, or in fact it is a stealth pathogen based on some borrellious bug, me? i just call myself “mr polyester” ( coz of the fibres u see) and look to the future, alll the best folks.. lets kep the dialogue cruising to the common good, remember, respect for human dignity is the order of the day, we have dark days to counenance, and we need prepare with grim and resolute determination for the future for our humanities sake

Smileykins Says:
July 28th, 2006 at 5:29 pm
Amen, Al. In with the good, and out with the bad. Really, though, man, you have a major lead in that pathology report. Go with it, so you can get treatment for what’s causing it.

Tim Johnson Says:
August 3rd, 2006 at 2:54 pm
Remember all of you who cant believe in something so absurd the majority of the world at one
time also thought the world was flat, and if man were ment to fly he would have wings.I personally have wittnessed the stealthy critters over 17 years ago and believe!

John Says:
August 9th, 2006 at 7:59 pm
Hi everyone. I reviewed your conversations after watching dateline tonight regarding Morgellons Disease. Let me tell everyone something, I am 29 and live a perfectly normal life now. However, when I was about 12, I started to notice these pimple like red bumpse on my inner arms. I kept trying to pop them for weeks. The doctor said to just leave them alone. They were painful and itchy. I finally was able to pop one and I pulled out a HUGE long, white, rubbery fibrous thing. It was about 4-5 inches long. I ended up cutting it off. I continued to this until I pulled all of these things out of my arms. I now have 3 scars on my left inner bicep and 2 on my right inner bicep. They are about the size of a pencil eraser. I was too embarrassed to show my mom back then. No one believes me know and I have never had that happen again and I am glad. Has anyone had anything similar?

Michael Says:
August 9th, 2006 at 8:32 pm
Sounds a bit like Guinea worms (dracunculiasis) but that’s incredibly rare, or maybe just an abscess with semi-solid pus that was squeezed out in cylindrical form. Does not really sound like Morgellons, but I guess your point is that there is some weird stuff out there.

John Says:
August 10th, 2006 at 6:51 pm
Hey, I read your response. They were not semi-solid. I had to cut them with a pair of scissors to get it out of my arm. I thought it might have been muscle fibers or something. I could pull on either end and release and the fiber would just kind of curl right back to it’s original size. Very strange.

DontWasteYourTimeOnMorgellonsWatch Says:
August 12th, 2006 at 6:03 pm
Don’t waste your time on morgellonswatch.com. This website is being paid for by the people responsible for spreading this disease/parasite/bacteria, whatever it is.

Smileykins Says:
August 12th, 2006 at 11:28 pm
The sky is falling, in other words. Um-hmm. Ignore your doctors and take off, You’ll never get to the finish line that way, especially when someone else is running the race for you and doesn’t know the course.

smileykins Says:
October 1st, 2006 at 11:29 am
Morgie people, it seems, are never really concerned about anything like that anyway. In their world, they make their own rules, for themselves, and for everyone else.

I know, and it is not a great world either.

I do apologise for posting things I should have not. I do realise my actions much later on, and I can not understand why I did such things.

Al – I think you understand where I am coming from here, I am sorry, but “confusion” is certainly my second name at the moment.

Mind you I keep reminding everyone I am running on “unleaded” at the moment. The glass is half full sort of thing.

My 9 yr old nephew cornered me, asking me “what is the disease you have, do they know what it is yet”?

I told him – “Rickettsia, some call it – Rocky Mountain Spotted Fever.” I said: “I have RMSP and some others, rather nasty things they are, but don’t you worry about that”.

My 12 yr old nephew made a firm decision with me yesterday he said: “Gill, you are definitely taking me to the Royal Melbourne Show next year, you and me, just like you did all the time when I was little.” “We will fill the back seat of the car with soft toys and show bags and I can ride in the front with you, just like we did one time.”

Well you were both kind of correct. The comments are indexed, but the result goes to the page the comment is on, which still has the comment, just way on down, so you need to do a local search to find it.

Anyways, point is that people don’t come here for the comments. Like Playboy, it’s the articles.

When you worked in horticulture and were knocking your scabs off daily, it was normal to expect the congealed, gelatinous material under your scabs.

Yukky….I am not a carpenter and never worked in horticulture. But loved to do the garden, and did with many lesions, and painted the inside of the house, and spray painted my art work, and sanded timber to build my plant stand on the back patio.

I am rather self sufficient, I even do windows – inside and out.

Off to eat something and snooze in the sunshine, I will leave you all with this…

When I first heard about this “disease” I figured it was a hoax. Now, reading some of the comments made by the obviously loony “sufferers” of this non-disease, it’s clear that it’s not a hoax exactly – simply an instance of crazy people glomming on to the internet to make their lunatic beliefs seem credible. Just like the “911 Truth” movement, “chemtrails”, and other assorted wackiness.

Just like the “911 Truth” movement, “chemtrails”, and other assorted wackiness.

I’ve avoided stating my opinions concerning these other issures, but others have seized the opportunity to state theirs, and have lumped them all together, so I’ll state mine.
I have seen the checkerboard pattern of chemtrails. I observed them at night, at low altitude in the moonlight. I don’t, however, have an opinion about their purpose.
As far as 911 is concerned, I definitely believe that it was an inside job. This isn’t the place to debate it, so I won’t take it any farther. You’ve stated your opinion, and I’ve stated mine.
I appreciate your comments and respect your opinions.
Tall Cotton

I don’t feel “morgellons disease” is simple enough to be called a hoax. In a nutshell, a mentally disturbed person, who had reasons for believing in its existence, posted what she believed on the web. Others identified with what they saw on her site, and registered, specifying their pre-existing, concurrent, medical conditions as part of the registration process. She deliberately cultivated her movement, on a mission to raise awareness of what she seems to thinks is a new disease, receiving reinforcement, herself, along the way. The case definition was composed from the list of previously diagnosed illnesses that people registered to become members of the Morgellons Research Foundation. As a result of the entire, ongoing, scenario, more vulnerably susceptible people have fallen under the belief, and continue having it dangerously reinforced. The movement has accomplished raising our awareness of a set of terribly misled people, some branching off into forming their own sects. There were apparently other unknown skin parasite web sites and message boards around before this particular phenomenon, but this one took hold like it did, and has received such attention, based on how it was orchestrated. Fibers are something anybody will identify with (some much stronger than the rest of us),
plus, the case definition is so all inclusive that it has naturally appealed to certain people.

No, “morgellons disease” isn’t a hoax, but quite a few believers are caught up in concern over many things, simultaneously, such as conspiracy theories. I respect the right to believe whatever one chooses, but it’s sad to see such a thing as all that “morgellons disease” seems to encompass. When beliefs interfere with the well being of any human, large or small, or their beloved pets, it is never good.

If you are interested in Morgellons Disease or experience Morgellons symptoms, I would like to invite you to participate in the Morgellons Disease Information Community and Message Board at morgellonsite.com

I went to your forum and posted. Now my password doesn’t work. I’ve requested a new password 3 times, and each time I was told that it had been emailed to me. Yet, it hasn’t been. Have I been barred from your forum? I’m interested in the topic of Morgellons, but I’m well aware of the fact that it’s isn’t a disease, or even a syndrome. I care about the people, and I know for a fact that the believers forums are quite harmul. Support is in the knowledge that Morgellons doesn’t exist, and the Morgies are delusional, all of them. So, if I wasn’t barred, I probably am now. It’s your loss, not mine, but if you want the truth, email me a new password. Thanks.

Dr Stenos asked Tony if I (ME) could keep him informed about any news or information I have on my condition??? How strange Tony phoned him to ask if he new someone who could maybe help me or take a damn look!!

Awful so awful. Professor Stephen Gray will return Tony’s phone call tomorrow. He is the head of the Rickettsial Research Laboratory.

And last but not least Al just phoned to see how I was. Nice guy.

One more: Tony said before “my god Gill I don’t know how you do this, strength, you are unbelievable”. I dunno about that one maybe unrecognisable is more like it.

Would you believe me if I told you I am sat at this computer in a blue pair of plastic flip flops, my night shirt, and my dressing gown?

I have been like this since 5.00am this morning.

BUT (love that word)

Yes I look like shit, I don’t care about my appearance.

I care about the truth, and nothing but.

I said to Tony before and I was serious, I said, “I can’t take much more of your abuse, or the abuse from my family”. “I really would prefer to end my life, but it is such a hard decision, I want to live, but I can not if this abuse continues.”

My entire “being” aches, not body or head, BOTH. They are ONE. No more fine lines.

I guess I can cross Beverley Drottar off my list of help and hope, the poor lady is struggling herself. I tried to call her through Skype but I couldn’t get through, and she could not see that I had contacted her. My goodness she has tried to get help for 25 years, and has Lyme Disease I think.

Anyway, I am not wanting to get involved in personal emails at this point in my journey, flying solo is the only way to go. Al was the only one I was having emails with towards the end, and now his darn computer has blown up. So I called him because I hadn’t heard and I was also very suspicious of him, naturally given this entire situation, he phoned me back this afternoon. He soothed me once again, nice guy.

Cyberspace morons have no clue about the real abuse that is going here. I will end up tearing my hair out. Maybe I should shave it off and become a Buddhist.

The head shaving ritual of Buddhism had always made me curious. After I saw a documentary on the ABC about Buddhism it confirmed in my heart my entire journey.

It made me start to rethink that if I shave my head again would I get better. BUT then I can’t coz my family would disown me! haven’t they kinda all ready??

Gillian, I hope Professor Gray can assist you properly. One thing that you’d recently said was:

I did however come away with a list of syndromes I had other than Rickettsia Spotted Fever Group. I won’t tell you the entire list, but Epilepsy, Multiple Sclerosis, Raynaud’s Phenomenon were amongst them. Oh and he did this entire diagnosis whilst sitting in his chair. He never examined me, only listened to my heart.

Warning: Nobody can diagnose anything without the proper types of testing! Do you actually have all your paperwork from rickettsiosis in your possession? If not, get all of it. You’d surely had to have been stricken severely ill and hospitalized way back when you first contracted RMSF, eight to ten years ago, or whenever that had been. Collect all of your records from every place you’ve ever been. Was The Australian Rickettsial Reference Laboratory who your testing was done through? Because, they are apparently legitimate, and accredited, through the National Association of Testing Authorities through the Australian government.

Also, within one of the long lists of symptoms/disorders you’ve posted, you’d recently said that you have encephalitis. (I had wondered about it, myself, a long ways back there, and mentioned that you needed to ask for a spinal tap, if you had, like you’d said then, rickettsiosis and lyme disease.) You’d said, a while back, that you were found to be anemic (which is not surprising), but, who had diagnosed you with encephalitis, and when?

If the lady physician that you have now is an AMA member, bring her up to speed with everything in your records that hasn’t been resolved. If she isn’t a member of the AMA, please help yourself by getting a doctor who is, and never, ever, treat with one who isn’t, from this point forward. Have you ever been seen by a rheumatologist?

AMA member doctors are committed to doctor-patient relationships based on mutual respect and collaboration.

High ethical standards

Just as their predecessors have followed ethical pathways, including the Hippocratic Oath, AMA members are guided by high standards of ethical behaviour. The AMA Code of Ethics provides guidelines for doctors on relationships with patients, on ethical professional behaviour, on the dignity and comfort of dying patients and other critical clinical issues.

Advancing the health and standards of medical care for the community

* AMA-member doctors share a commitment to improve access to quality medical services in the community.
* Through their membership, they also stand behind the AMA’s efforts to advance medicine and to promote healthier lifestyles for Australians through methods including bipartisan lobbying for measures that will improve health.

Membership of the AMA Victoria is open to medical practitioners who hold current registration with the Medical Practitioners Board of Victoria.

Use Doctor Search to find an AMA doctor near you or with special interests aligned with your health needs

Do you actually have all your paperwork from rickettsiosis in your possession?

Yes I do.

You’d surely had to have been stricken severely ill and hospitalized way back when you first contracted RMSF, eight to ten years ago, or whenever that had been.

I was tested for RMSF in February 2005.

Personally, I feel I have had RMSF for much longer than 8 or 10 years. When I was 20yrs I had just started working at a Public Hospital here in Melbourne. I became very ill, it was like a virus. I was bed bound for 2 weeks. The symptoms were terrible.
My treating Physician said I had a viral encaphalitis. I made a full recovery after 2 weeks. I was not hospitalised. I did however have to ring a locumn doctor to visit me at home. He had to administer an injection to stop me from vomiting.

Funny thing I never really felt quite right from that time own. I then started with really bad eczema. I would sratch in my sleep, and wake up with blood all over my PJ’s.

Following that episode I was then knocked off my feet with severe Bronchitis.

Was The Australian Rickettsial Reference Laboratory who your testing was done through?

Yes.

Also, within one of the long lists of symptoms/disorders you’ve posted, you’d recently said that you have encephalitis. (I had wondered about it, myself, a long ways back there, and mentioned that you needed to ask for a spinal tap, if you had, like you’d said then, rickettsiosis and lyme disease.) You’d said, a while back, that you were found to be anemic (which is not surprising), but, who had diagnosed you with encephalitis, and when?

I had diagnosed myself with encephalitis!

I can not think of anything really that can make ones skull change shape on a daily basis.
My head would sweat severely in my sleep (especially when I had no hair) my pillow would be wet through every morning.
My head felt like it was going to explode from pain, photosensitivity, all the classic symptoms, as well screaming in pain!
I didn’t have the spinal tap.

If the lady physician that you have now is an AMA member, bring her up to speed with everything in your records that hasn’t been resolved. If she isn’t a member of the AMA, please help yourself by getting a doctor who is, and never, ever, treat with one who isn’t, from this point forward. Have you ever been seen by a rheumatologist?

I would never visit a doctor who was not registered with the AMA.

I was diagnosed with Fibromyalgia 10 years by one of the best Rheumatologist in Melbourne. I also used to work in the same hospital as him, and type his medical reports.

My current lady Doctor then referred me back to him 4 years ago, she suspected that I could have Lupus. I went to see him. He was very very different with me in that particular consulation, as opposed to the first time I saw him. In other words he wanted to get me out of the office. He promised to phone me with my results. I had to chase him up, and when I did speak to him he got rid of me quick smart and said all my tests were normal and he could not help me any further.

Thank you for the AMA information. I have AMA documents in my possession, but I haven’t put pen to paper yet, but I will certainly be considering it.

I really do have my fingers crossed that Professor Gray can help me. He should be phoning Tony back today. At present I am back to the beginning again, the doctor doesn’t know what to do for me.

Personally I think they should stick me in a sterile room and give me a thorough examination from head to toe, and lots of lab tests (especially since I have been a lab rat most of my life).

I hate bringing more things up, but, Gillian, you’d once described the symptoms of a ruptured disc when you were taking a shower. Was your cervical spine ever x-rayed?

I don’t mind answering your questions at all.

I have never had my cervical spine x-rayed.

I was promised a CT of my cervical spine 2 years ago, but then the doctor changed his mind. I have a witness to that also.

My neck is actually very painful, I can hardly turn my head some days, I have to move my entire body to see over my shoulder. That is why I prefer to stay home, too dangerous for me to be driving. I am dangerous enough at home on my own. I wobble around, bouch of the walls going down the hallway if I am very tired. I am scared I will have a nasty fall, especially since my right hip feels like it is about to cave in.

My right hip has a cleft or tear in the acetabular labrum. The MRI report said abnormal morphology, maybe due to trauma. I had one of the best Radiologists do my report. I used to work with him. I asked him what should I do about my hip problem, he said get a hip replacement, I said okay, no thanks!

Honestly though a hip replacement at 33yrs of age? Not good, especially when I have always been so athletic. I even saw the Sports Medicine Doctors (same place I worked with the Radiologist). These doctors look after our Australian Olympic Athletes, The Australia Cricket Team, The Australian Footballers, they are fantastic. They asked me how I kept my leg muscles in such peak condition, I said I walk, and mountain bike ride. These doctors were also at a loss as to the “pains” I was experiencing in my body.

I even had physio therapy at the same place. He would tape up my lower back, it was murder the pain. I used to cry walking home from the train station after work because the pain was so bad in my hips, groin, and legs. My ankles, feet and calves would burn like hell. That was when I really started to go down hill and that was the last decent job I did, I had to quit. This illness was just totally taking over me.

Just thought I would let you know that Al gave me a call this morning.

He is doing okay, and has some ideas in the pipe line.

He is a good inspiration to me.

He gave me a little lecture about trying to keep my rage and anger under control. I said Al I am like a damn child, I have tantrums!

I know I wouldn’t have these tantrums if I wasn’t exposed to the alcohol. Not me drinking it, living in the same house as an alcoholic is just terrible when one has “this” bizarre condition that I have.

The other night Tony drank a whole bottle of Vodka and I could not believe it, didn’t even touch the sides, he was not really drunk. But then last night my god just terrible. So no wonder I had a massive seizure. I had raged and smashed things prior to this. I was experiencing visions, illusions, I felt like Jesus Christ himself. Yes I know please don’t laugh.

Especially since I have a lesion or spot in the middle of my left hand, which opened up yesterday morning, just a big hole. The only thing I can recall that would have caused this was stabbing myself with a tooth pick. I was cleaning and picked up some things to put in the bin and I grabbed the tooth pick and it stabbed my palm. At the time I didn’t feel it happen, which I presume is due to my neuropathy. When I woke up yesterday morning it was throbbing.

I showed Tony over breakfast. I said how are your hands, because he has had some nasty lesions on his hands, one in particular squirted blood like a foundation. He ended up in hospital, we couldn’t stop the bleeding for 3 hours, and his nose was going at the same time. He stayed over night. His platelets at that time were 35. The physician told him to eat green leavy vegetables and stop drinking. He doesn’t have any lesions on his hands at the moment. But he had a spider naevi in the centre of his left wrist. I thought to myself, oh dear, we ARE both dying, who is going to go first.

So yeah we do full circle. I end up with the brunt of the entire insanity of alcholism.

At least Al didn’t laugh when I told him about last night. It was almost like Adam and Eve fighting. I have had this experience many times before. I feel the alcohol brings evil into the house, it sets me off. I was screaming at the top of my lungs to Tony “you bring evil into this house with that alcohol, do you not see, do you not see, this has to stop”!

I wish Tony could see all the potential he has for such a wonderful life. Such a brilliant, intelligent and oh so funny man. He deserves so much more than this. He is catholic, and I believe he also as a “hightened awareness” almost psychic and the alcohol is numbing all of this. The booze is really trying to destroy his soul.

How can you tell someone else this sort of stuff. Those poor people who have been looked up in psych. hospitals, it just makes me weep.

My very first job was in Mental Health Care. I absolutely loved the job. The people the patients, great memories. I actually visited one of the psych. hosptials (which is now shut down) and guess what???? a patient came and spoke with me, he told me he was “Jesus Christ” himself. At the time it felt a little scarey, but I was very pleasant to the man, and said I was ever so pleased to meet him.

That guy was really locked in himself. Such an awful place to be really caught between Heaven and Hell, and he could not get anyone to believe him.

Tony had a ??? BCC Basal Cell Carcinoma cut out of his face last week. Left cheek, close to the left ear. This started like a little pimp. Then went black. The Surgeon said he had little black hairs growing from the pigmented lesion/mark. He used a dramatoscope I think with a light to view this.

The scar is very long 2cm and 10 stitches. They did a brilliant job, done at a private medical surgery not far from my home.

The Surgeon said to Tony he is 100% okay now. In fact Tony is starting to look much better. I’m bloody jealous about that too!!

I have the very same lesions just like Tony had on his face. But mine don’t turn into anything. Mine open up with a hole, and inside is a thick dair hair, like horse hair.

I had 3 of these pimple lump lesions come up in a row the other day. I took a photo, I had to document the proof.

I was promised a CT of my cervical spine 2 years ago, but then the doctor changed his mind. I have a witness to that also.

I can’t imagine what kind of reasonable explanation your doctor had given you to justify changing his mind, but the solution is to justify your position, or go to an emergency room and complain of neck pain.

TallCotton;
First I would like to congratulate you on being so well educated on a “mystery disease” that CDC has not even begun to figure out. I admire your willingness to rule out a disease that MORE educated people, have not yet ruled out.
You must have spent a long time in a lab studying Morgellons. I do not have time to read all 800 posts, so please fill me in on how you came to the conclusion that Morgellons is a delusion.
Also, please tell me how to get rid of delusions (since you are so wise), because I may just be delusional as well.
I did have time to read your comments about SueL’s son. It is good that you dont care how you are making people feel. I mean why would you? You haven’t lost a child.
I assure you, when faced with the death of a child, if you had a heart, you would research every available disease and cure, HOPING that one day (hopefully not too late) that you would find the cure that would save your childs life.
You do not know all of the facts surrounding Joshuas death. Doctors diagnosed Joshua with a Brain Tumor, technically PER doctors (who also know nothing of Morgellons) it was a brain tumor. Upon researching, Morgellons described what Joshua had better than anything, even brain tumors.
I witnessed what Joshua went through. And I can only tell you, if brain tumors can cause painful open sores all over the parts of your body that you had not layed on at all in the months you were bed ridden…Then I pray you never get a brain tumor.
Joshua was a child in our eyes when he passed away. He never experienced the things that we have had the luxury of experiencing as adults. And unless it is proven that Morgellons is a delusion, please be careful to make comments that you may regret in the future. There is not a cure for delusions, and unfortunately for you, there is not a cure for ignorance.
Sincerely,
Tina (Joshuas sister)
Let’s please save what memory we do have of Josh, and STOP using him as a weapon for your ignorance. That is not fair to Josh, who is no longer here to tell his story.

If anyone is using someone’s death as a weapon, it’s you and your mom. Josh did not die of Morgellons. There is no such thing as Morgellons. And for your information, I did lose a child. She was nine years old, and was run over by a car. Quit blaming Josh’s death on a disease that doesn’t exist!

Hi
This is my first time…i guess im in the right place b/c i want to cry….i can no longer spaek or think or remember adequately enough to leave my house. My entire scalp is covered and my vision has changed and i can’t drive. My family and I learned of this condition 3 days ago, after 4 yrs of humiliation, rejection,and seclusion. I am concerned with my brain. I used to be a RN, but my immune system couldn’t take it…i am also a bone cancer survivor (16 yrs) ,and those bones are most affected by this thing. my family believes this morgellons theory but not convinced,,i don’t want to lose my mind before they disregard my feelings….

THERE IS A CURE. My brother suffered from it. We bought a cheap microscope (only 20 bucks!) on EBAY and the fibers were exactly like the ones on the internet and they were VERY alive. We beat it, and here is how: He used Borax – 1 cup – in his bathwater each day, he used a special soap that I bought on the internet (sorry, can’t remember the name but it’s only a symptom reliever anyway), and most importantly, he megadosed on silver colloid. Now listen, DO NOT FALL for the ionic crap. It is the COLLOID, not the ionic, that will beat Morgellons. We tried the ionic at twice the price (fell for the hype) and it had no effect. I bought him a ton of things, had him taking homeopathic boron, top of the line chelation, using tons of products to soothe the itching, but it was two things that actually BEAT Morgellons: A decent quality COLLOIDAL silver (2 teaspoons every 15 minutes for 4 hours – and no, it will NOT turn you blue), COMBINED with a dewormer. The first time we thought we beat it, he only used the silver, and it came back several weeks later. The time he really beat it, he convinced a doctor to give him a script for dewormer. If he had not been able to get the doc to write the script, he was going to go to a feed and seed store and buy a dog dewormer. Yes, it is the same crap, more or less, and no, it will not kill you. You use it just as you would give it to your dog, pound for pound. The swinish doctors will not diagnose your condition. They go to their script: Delusions of Parasitosis. You are on your own, my friend, against black-ops nano-pests. You can bring a wiggling stool sample to the M-Diety and he’ll tell you there is nothing there. He’ll REFUSE to put it under a glass in your presence. But you can beat it yourself: Megadose on silver colloid and deworm your self immediately after. Watch and see. Hey, hit me back after you are CURED. By the way, not that it matters what brand you use, but the quality/price product we used was Mesosilver. Again, any properly prepared colloidal silver will do, but if you want the identical product, it was Mesosilver. One more thing: The same illuminati that gifted you with nano-bugs will do 2 things to keep you sick: Lie to you about argyria, and dazzle you with an array of bogus products with “scienticious” crap-talk. Listen to experience and beat the damned disease.

I have all the same symptoms, the itching, the crawling, a break out at every three to seven days, that is so intense. Night time is the worse, and at times when I just simply just try to rest, I feel the crawling under my skin. I have seen tiny tiny white dots appear on my skin. Feels like mites crawling in my scalp. I thought this to be scabies, but I have treated myself with prescriptions from the doctors, took care of my enviroment. I get relief but it comes back. Now the doctors are saying this is all in my head. I don’t know how much longer I can hold on, I really don’t. The stinging, crawling, itching, has become so intense I have thought of ways of how to end my life. I don’t want to die….I have everything to live for, but the pain is so severe, and the mental anguish, of it all. I would agree with the doctors that this could be in my head, if it had not been for the fact, I had scabies in 1986. The exact same signs. The doctor then prescribed med, I took care of my enviroment and got rid of it. But the problem is, there are very little signs of it on my skin, and the doctors don’t believe I have it. I know I do!

I’ am going to try what ScaredCowTipper suggested and see if it will work for me. I pray it does.