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Saturday, January 19, 2013

In Cancer Quackery News

Stanislaw Burzynski threatens one of his own patients over website

Anti-cancer-quackery blogger Robert Blaskiewicz has a blog post up
that details how Houston-based "alternative cancer treatment"
practitioner Stanislaw Burzynski (photo at left) whom many reasoned
minds in the oncology field would describe as a quack, has crossed a new
line in his ongoing awfulness.

The latest: Burzynski's rep threatened
one of his own patients, Wayne Merritt who had advanced pancreatic
cancer, after Wayne (right) and his wife Lisa published a website
detailing how they'd been duped.
That site, burzynskiscam.com, is still up, despite the nastygram threatening "to file a legal lawsuit" for its purportedly "defamatory" contents.
Threatening bloggers is nothing new for Burzynski, but threatening cancer patients is, as far as I can tell.
Blaskiewicz adds,

The Skeptics for the Protection of Cancer Patients is
looking to put an actual dent into Burzynski's wallet while shaming him
publicly for what he's done by raising money for St. Jude's Children's
Research Hospital. We're trying to raise $30,000, the cost of starting
his bogus trials according to a patient who was dead just days after
starting his treatment. We're donating all of it in his name on his
birthday, Jan 23rd. That same day, we're issuing a challenge to the
Clinic to MATCH THE TOTAL that skeptics raise. That's the big thing.
Regardless of whether or not he participates (and I suspect that it's
hard to shame the shameless), we plan to say that it's probably the
greatest contribution to cancer research ever made in his name. :) The fundraiser is here.
For bloggers who want to help drive his google search results into the
toilet (by putting reliable info in its place), a guide can be found at thehoustoncancerquack.com. Feel free to use the birthday ducky graphic I have there. :)

And Dr. Harriet Hall, aka "The SkepDoc,"
sent around this email backgrounder to Skeptics and pro-science types.
It's a good place to start, if you're not familiar yet with Burzynski.
I'll paste it here, below:

Stanislaw Burzynski is a doctor who has lured patients to his Houston
clinic with two promises: to try to cure their incurable cancers with
his antineoplaston treatments, and to enroll them in a clinical trial.
Patients in clinical trials are usually reimbursed for all expenses and
paid for participating. Instead, Burzynski makes them pay for
everything, typically $30,000. And, he is only claiming to do clinical
trials because the FDA has investigated him and has prohibited him from
treating patients outside of trials. So he pretends to be doing clinical
trials, but he never publishes any results. Instead of a research
protocol with IRB oversight and informed consent, he offers
"individualized" experimental treatments to patients without any
randomization or controls. He produces his own drugs and charges more
than they would cost elsewhere. He claims to have many miraculous
successes, but a website is accumulating the case histories of his far
more numerous failures.
Read some of the stories here and weep. Just one example: He told a patient his cancer had shrunk by
84% on the latest MRI, so the patient assumed he was improving and wrote
a check for another course of treatment. Then the neurosurgeon who had
originally operated on him got a hold of the MRI and saw that the tumor
was actually unchanged; the Burzynski Clinic had misinterpreted the
healing of the hole where part of the tumor had been removed. Over a
hundred of these cases have been collected and are gradually going up on
the website to counter the testimonials on the misleading Burzynski
Patient Group website. [The most recent entry demonstrates that threats
have been issued against cancer patients.]
A website entitled "The Houston Cancer Quack" has been established to
carry out a fund raising drive. The plan is to raise $30,000, the
typical cost of treatment for a Burzynski patient, and to notify
Burzynski on his birthday as a sort of birthday present. The money will
go to support legitimate cancer research at the St. Jude Children's
Hospital, and Burzynski will be challenged to match the donation. He can
afford it. He lives in a $6 million, 14,495 square foot mansion.
He continues to offer unethical treatments to these desperate patients,
who are being financially ruined in the pursuit of false hope and have
been robbed of the opportunity for conventional palliative care and
precious time with their families.
For more information see the article Dr. Gorski wrote on the
"Science-Based Medicine" website today.
Also see the numerous articles he has written on the Respectful
Insolence website.
What Burzynski is doing is evil. The FDA tried to stop him and failed.
The Texas Medical Board tried to stop him, but lost on a technicality.
We are hoping this fund raising drive will bring his misdeeds to the
attention of the public. We hope the media will pick it up and spread
the word to a wide audience.
This is a win/win proposition: You can support cancer research for
children and simultaneously embarrass a doctor who is getting rich
preying on vulnerable cancer patients. I can't think of a worthier
cause. Please, PLEASE go to this webpage.
Click on the donate button. It's secure and simple to make a donation
with your credit card online.
Skeptics, Unite! Here's a chance for skeptics to really make a difference.

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