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2016 Speak Now For Kids Family Advocacy Day Hero: Christian

When he was 10-months-old, Christian was diagnosed with cerebral palsy, hydrocephly and quadriplegia. Before receiving this diagnosis, Christian’s family remembers reviewing the MRI scan of Christian’s brain alongside his doctor at Children’s Specialized Hospital; Christian was missing half of his brain. At first, Christian was unable to walk, speak and eat on his own. He also had several sensory issues which made it difficult for his family to care for him at home.

Despite these challenges, Christian is mentally strong. Since receiving both medical and therapy services at Children’s Specialized, Christian has progressed into an independent and happy teenager. He has learned to operate a power wheelchair, feed himself and communicate verbally. Without the exceptional care Christian received from Children’s Specialized, he would be completely dependent on others and would have remained detached from his community and school system. However, this is not the case. Now 18-years-old, Christian is extremely active in his school community and plays many sports with his friends, including sled hockey, rock climbing and softball.

Hi Christian! I am so excited for you, Nancy and Lisa that you are going to Washington to meet with our congress and share your amazing story. Thank you for advocating for special needs children everywhere and sharing what a special place Children’s Specialized Hospital is. I hope you enjoy every moment.

Hi Christian, Thank you so much for traveling to Washington, D.C. to advocate for a world where all children can reach their full potential. We couldn’t ask for anyone better to represent us. Enjoy the trip and let me know how it goes!! Fondly, Warren Moore, President & CEO of Children’s Specialized Hospital

Hi Christian! I am so excited for you, Nancy and Lisa that you are going to Washington to meet with our congress and share your amazing story. Thank you for advocating for special needs children everywhere and sharing what a special place Children’s Specialized Hospital is. I hope you enjoy every moment. Love, Linda Waddell

Hi Christian! Wow, you and Mimi talking on Capitol Hill! I vividly remember so many of the conversations about you and your equipment. You have come a long way, and so has Mimi!!! (Getting the power chair or getting the stroller out of the trunk of the car- I am not sure which of those was more difficult!!!!) I’m so proud of you and impressed that you are getting involved in advocacy. Enjoy Capitol Hill and good luck!!!! Love – Theresa Defosse

Hi Christian,
Ken, Kenny, and I are so excited that you are going to Washington to talk to our legislators on Capital Hill. You are the best one to represent what it takes for you and all of us to be our very best. Bring your boxing gloves!! Take care of Mimi!! Have some big fun too!!
Love,
Pat O’Hanlon

Hi Christian,
We are so very proud of you and your family. Thank you for coming to Washington DC to share your story and advocate for Children’s Specialized Hospital. We know you will leave a lasting impression and inspire others to promote healthcare for special needs children.
Fondly,
Donna Provenzano