Spent last night at the JR. My daughter was as hyper, anxious, aggressive, self harming (ie hitting head on wall) and biting me and suddenly she started to have what looked like a fit. this happened three times, the last time instead of bouncing back to the challenging behaviour she was groggy and then threw up.

I phoned the out of hours GP who told me to phone an ambulance. Very scary.

We waited in a ghost town of the Children's A&E for hours for the paediatric neurologist. empty because the new Children's Hospital at the John Radcliffe is full and they are diverting and sending all children to Milton Keynes!!! Even if you drive that's far, almost another planet.

Thankfully it was some extreme form of anxiety and not epilepsy or a bleed on the brain as the GP suggested!

So, here I am, exhausted, a child sleeping all day, who won't sleep at night anyway and I had to still speak to the Autism Outreach Service (lots of promising stuff and support for September there) so I can't sleep, so...

Why couldn't they have been filming this morning? After all, discharged at 3.30, no money for a taxi, daughter too hyper to sit in waiting room for over two hours 'til first bus to city centre so we walked.... Yes, walked, obviously my powered wheelchair didn't fit in the ambulance, so I took my dear old rollator. It took us two hours, lots of stopping. Well, how can I walk everyone will ask? Well I can, painfully and slowly with a cost. the cost will come in two days, normally. The pain is already here, like nothing on Earth, but in a day or so the ME energy exchange will kick in and walking even to the toilet from the bed will be next to impossible for two to three days. Oh the joys of balancing the needs to pace severe ME and the need to care for an autistic daughter!

The High was bizarre, the sky beautiful. It was like walking in an episode of Lewis - fresh clean sky, hardly any traffic and few people.

But cold. Isn't it cold for June?

Why doesn't the nexus point wormhole of all Oxfordshire outside the Radcliffe Camera work for real, like in Lewis. Oh, to walk at the barrier really determined and end up at the end of our street!

And oh why couldn't they have been filming? Lewis DVDs keep her a bit still, but imagine the impact of Lewis (Kevin Whately) telling her to go to bed every night and stay there until morning (unless you need the loo! - be precise, she needs precision!!!) every night, without fail.

And an autograph from the boys might make the asparagus' mama smile too :)

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*many many hugs*Much sympathy from my mother and, of course, myself.I'm glad your daughter's ok, and meeting the boys would have been wonderful, shame about the timing of filming etc :P Maybe you two should write to them- I'm sure Kevin Whately would write a letter with the relevant points in (especially if you told him what to write!) XDOxford is a beautiful city, but imagine the wonder palls at that time of the morning when you have to walk... *more hugs*

It was very beautiful, and weird, like some SF where everybody else has been transported off world. I have never seen Oxford like that, the only dawn I've ever seen being May Day :)

Thanks for the tip on Kevin Whately. I sometimes think he would have a little empathy and understanding, having cared for his mother. I suppose I just google his agent or something?

Thanks for the hugs. Need them.

Actually, years ago when she was in love with a certain somebody, I was so desperate I wrote and got a letter back telling her to go to school, he knew school could be horrible but an education was important. And she got a personal letter from him too, and lets just say in 2005 he was the busiest (and most powerful!) man in the country. Oh babyklingon's strange crushes!

Re Kevin Whately, I tried googling it, and no luck sadly, though perseverance etc. Could try Laurence Fox though. And I'm a little jealous of babyklingon- I wrote to John Barrowman a while back and got the signed pictures I wanted (one for a friend's birthday!) but it was a rote letter. But what she got is fabulous- I appreciate people who take the time like that.

That would work- should be pretty cool if you get a decent reply. And yeah, I kinda expected it of Mr Barrowman, he fills his time so much.OMW where is that??? Mind you, we move around for each holiday- Aberystwyth this year :) I'm sure there's a website somewhere that has the details, but finding a free one is tricky.Yay for respite and wonderful brothers :) (Mine is 12, so irritating generally, but surprisingly sweet at times) Good luck with writing the statement, may the words flow!

I hope all is well now and that you have gotten your LEWIS DVD's. I can't imagine my self in your shoes. But you are a gret inspiration to all and I believe that you should be rewarded for your love. I believe if you write to his agent she will be able to get you some sighned merchenise. I know some one who did that for their mother (it was sent to eastenders) but after a while they rechived stuff. I hope you get your clear sunny sky soon. Like now. :-)XX

Thank you for your warmth and sympathy. I had to stay awake after we got back for a metting with an Autism Advisory bloke, but it was rewarding. Things may get better by the new academic year, providing the anxiety can be lessened to actually get her to school.

Oh, and thanks for the hugs and the tip about his agent. do I just google to find?

Yea. Or you could search for his offical website that should have all contact information needed. Another way to get the information is to contact ITV I'm not really too sure if that works as well bur its worth a shot to try.I hope you manage to have a good night to night and get the information needed to recieve the autographe. XX:-)