United Way of Allegheny

National Rare Disease Awareness Day

On February 28, 2014, the RSG1 Foundation will be celebrating "National Rare Disease Awareness Day" by asking all of our supporters to show how much they care by "wearing jeans" to their work place, social groups or to their schools or favorite hangouts!

RSG1 supports many clients and patients that suffer from different rare diseases. RSG1 was originally founded in 2009, after a young girl by the name of Remi Sophia Savioz was diagnosed with Glucose Transporter Type1 Deficiency Syndrome. Now, RSG1 has evolved into an organization that reaches out to helping many different clients and patients, and continues to flourish in its efforts!

On February 28, 2014 RSG1 will commemorate all of those afflicted with rare diseases, their family members, caregivers and communities at large. Developing new treatments, therapies and educational tools; that assist families and patients- to join together on behalf of our common goals!

Join RSG1 and show that "YOU CARE" by wearing jeans on February 28, 2014 and post your pictures on our Facebook page or email them to us at samra.foundation@gmail.com.

Helping Those in Need

The RSG1 Foundation is supporting a “human clinical trial” to find ways to help patients with malignant brain tumors.

We recently shipped a batch of medical supplies to the Barrow Neurological Institute and Research Center in Phoenix, AZ for 40 patients with malignant brain tumors who are participating in a clinical trial. In total, the foundation is contributing $40,000 of medical supplies toward the study.

The clinical trial is studying the Ketogenic Diet as adjuvant therapy with chemotherapy and radiation. This is the first human clinical trial of this kind to be approved for malignant brain tumor patients.

The trial at the institute and center are being conducted by Adrienne C. Scheck, PhD.

Alternative therapies give patients with malignant brain tumors, cancer and other neurological disorders hope for prolonging and enhancing quality of the life.

The funds for this trial were raised by the foundation through special events such as the Valentine’s Race in North Park in Pittsburgh.

Our Mission

The mission of the RSG1 Foundation is to fund research, awareness, and education of glucose transporters and glucose metabolism, which affect the treatment of brain tumors, cancer, Alzheimer's, glucose transporter type 1 deficiency syndrome, epilepsy, ALS, heart disease, and diabetes. We are interested in funding the advancement of novel treatment and therapy approaches as well as investing in progressive alternatives that help save lives. The RSG1 Foundation will continue to strive to develop treatments to repair the nervous system in order to restore function and quality of life.

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