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I missed this when it was first posted....we lost power on Tuesday night...and it was out for 14+ hours...then I was busy all day yesterday....I am so glad to read that the first infusion went well and am praying for continued improvement for Leon!

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Thank heavens I may actually have my head above water today! Leon says he's breathing MUCH better and he actually made it from the hospital entrance to the infusion room without a wheelchair. That's a HUGE step for him! The fourth infusion and his sleep deprivation EEG will be Monday, so that will be a long day for both of us, but hopefully there will be a break in testing and treatment for awhile. Hey, whatever it takes!!! It has been a big eye-opener for him seeing so many more patients his age or older and also so many patients with various ailments who are in so much worse shape than he is. This experience certainly makes us get our priorities in order. Thanks so much to everyone for all your prayers, support, and good thoughts, because they have helped so much, but please don't stop now.