Expectations

Submitted by Michèle on Sat, 2008-04-26 02:42

What to Expect from the Treatment.

This treatment will not make you better overnight. Unlike most bacteria Cpni is difficult to get rid of and will take a long time to eradicate. If you think of it as similar to tuberculosis treatment you will have a better understanding of the complexity of the protocol you are about to undertake and the length of time it will take.

One of the problems to getting started that a significant number of people report, is what is described here as 'brain fog'. 'Brain fog' is something that may have crept up on you which makes it more difficult to understand things, make decisions, be rational, remember things. So trying to understand how Cpn makes you ill, deciphering something as complex as the Combined Antibiotic Protocol (CAPi) and knowing enough to be able to convince your doctor to support you in the treatment can be quite an undertaking. Be patient with yourself and expect to read things more than once.

Another of the difficulties you might encounter in the beginning is that you are likely to feel worse, maybe function less well and discover new areas of infection in your body that you knew nothing about. The reason for this is: when Cpn dies it releases toxins in the body which make you feel worse and may cause inflammationi that affects your ability to function. Often old injuries resurface and even areas that had not troubled you up to the present can become painful or uncomfortable. This may be particularly true of the joints of people over 40.

These worsening symptoms might well go on for several months. This can be very frightening and unsettling especially for CFSi or MS patients who might suffer from extreme fatigue or pseudo relapses. A pseudo relapse is an event that feels very much like the real thing but usually recovers without leaving any damage behind. This may happen several times during the treatment.

On the other hand you may be one of the lucky individuals who have little or no reactions to the treatment but still make significant progress.

Keep in mind that reading forum/blog posts can give you a skewed view of the difficulty of the CAP treatment, as you will see more posts from people having difficulty and needing help or encouragment than from people experiencing more mild reaction.

Progress will come slowly at first, it may be subtle and practically unnoticeable except in hindsight. Using a blog to chart your progress or keeping a diary will help to see how far you have come.

In the first few months you will gradually become accustomed to taking the antibioticsi and you may well see some notable improvements, especially if you suffer from conditions involving the upper respiratory system, such as asthmai, bronchitis, sinusitis and otitis or vertigo.

Another often reported initial improvement is body temperature. Many new patients report an inability to control body temperature: icy cold extremities that nothing will warm or repeated flushing. These symptoms often rectify themselves in the first few months.

The treatment of Cpn with an antibiotic protocol is still a work in progress and there are not enough patient experiences to be able to predict how long the treatment will go on for. What we say is that each patient has a different load of Cpn located in different parts of their body which has been afflicting them for a different length of time, so recovery will depend on all these variables and the outcome cannot be predicted. Suffice it to say that the majority of people who continue to report are noting a significant return to health. Dr. Stratton of Vanderbilt University who first formulated a treatment for Cpn suggests that a 3 to 5 years period of treatment is likely to be necessary.

I recommend that you read the Patients’ Stories< section to get a feel of what people’s experience of the treatment is like.

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