About me

PROFILE:

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, November 16, 2012

The Huffington Post

Trying to get my message out,
has been jolly hard work considering my poor state of health. Yet it is this
very state that drives me forward, determined not to give in, I battle two chronic
diseases with a fighting spirit and a positive attitude. I have spent many
hours writing, blogging each day, answering numerous e-mails I receive from around
the world, and taking on occasional public speaking engagements. When one is
talking about chronic disease, it is a topic that is far from sensational or sizzling;
therefore it is understandably harder to get people interested or to listen. Most
have not heard of Gaucher disease, justifiably so, as it is a rare disease with
only approximately 10,000 patients worldwide. I am also trying to reach fellow
sufferers / care givers, and to make the general public more aware. Everyone
has heard of Parkinson's, yet it's surprising how many assume it is a disease affecting
only the elderly, when in fact the number of young onset Parkinson's patients
is increasing. Generally people associate Parkinson's with simply shaking, and are
not aware of the many unpleasant symptoms that patients suffer from with this
degenerative disease. I was therefore thrilled and delighted to be asked by TheHuffington Post, to write a weekly blog for their Lifestyle Section and am very grateful for this opportunity. With a
worldwide circulation, I hope to further my campaign of reaching others in
similar circumstances, offering support and bringing greater awareness to issues
that are close to my heart.