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Saturday, August 3, 2013

August 3 Update

It's been two months out of the hospital now, and Tricia continues to improve a little bit every day. She is able to do all everyday tasks for herself now, which is making her feel more and more confident and "normal". Her strength and breathing continues to improve as well. She has officially "graduated" from her physical therapy, meaning she has completed the required number of days, but she continues to go every day that she is not in clinic until we are released to return home permanently. We have been home every weekend for the past several weeks, and we are hoping that we'll be allowed to be home for good by the start of the school year in a few weeks.

Tricia is scheduled to have her staples removed this week, and is hoping to have her trach removed as well. This past week, she had a study done to find out if she will need the nissen fundoplication surgery in the future to keep her acid reflux from causing damage to her new lungs. We should hear about the results on the study in the next few days.

11 comments:

I'm so glad to hear that Tricia is getting stronger day by day. I'm sure she is happy to be able to do "normal" things again, after so long a time of being sick. Keeping you all in my prayers, and thanks for the update.

Very thankful for Tricia's progress and praying for her continued recovery and improvement. Hope that things go well in this coming week and that you are all home together again soon. Thanks for the update Nate!

Thank you so much for the update! Prayers are continuing with y'all! I can't imagine how ready you are to have your family back together permanently! praying that this can happen soon!! I can only imagine how tired y'all are and how there is so much going on everyday. Thank you for taking the time to update us... we all appreciate it and it is so thoughtful of you!Our prayers continue!:) Rebecca

I've been thinking about your family off and on since I went to the outer banks on vacation for the first time this summer and stayed in Nags Head. My older kids remembered us all praying for you and we reminisced about taking an all brown/pink picture one day in support of Gwyneth, and her sweet little webkinz pug that you would take pictures of with her in the hospital.

I thought about y'all again this week, and am so glad I looked you up online again to see how things are. Praying for Tricias continued recovery from transplant take 2.

Start Here

If you are new to the Confessions Of A CF Husband Blog, and you don't have several hours to read every post, you may want to get to know us quickly by Reading This First.

Meet The cfhusband

My name is Nathan. My wife, Tricia has Cystic Fibrosis (CF) and had been preparing for a double lung transplant until we discovered we were pregnant. Surviving a premature birth, double lung transplant and lymphoma is just the beginning of our story.Tricia is the most incredible person I've ever met. She keeps me humble and in love.Gwyneth is our beautiful daughter, born 15+ weeks early, weighing just 1lb 6oz.Tricia is now breathing with the help of donated lungs, and Gwyneth is on her way out of the NICU and into our hearts.This is our story from my perspective...