Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

Weekend Wowchies Check-in

I have a neologism (new word) for us: Wowchies. The ouch so sudden and surprising, you say "Wow/ouch" (or WTF/ouch) and now, wowchies!

Or it could be a bizarre dog breed. Eh.

***

Today, friends, I ask your help.

Please, if you know anything in real life experience --- not internet --- about kids who develop heart problems between ages 10-15? Not congenital! --- pls PM or ping me, okay? One of my godsons is having a new issue and we're not sure how long he has. He's only 13. Started sliding downhill badly a year ago almsot to the day, with non-specific dysautonomia diagnosed, and now he's getting cardiac stuff bad enough that he needs a stress test. His mom is distraught, his dad's being a dickhead, and we just don't *know*. He's declined so bad from dysautonomia --- an dusually tht's just a tendency to get dizzy or faint easily (blood pressure drops on standing, or vasovagal nerve twigs and you go down, not exactly life-threatening stuff!) --- but he can't even go to school anymore.

We may/may not know more within a *month* --- he has to go to a big city for a lot of neuro, cardio, and other testing --- but....

Please, include my friend in your prayers, in whatever way you pray or send good vibes to the cosmos, that she'll have the strength she needs and the good luck she needs, even if that good luck means she gets her dickhead husband to be okay with her taking a leave of absence from her job. SHe teaches kids her own kid's age, and it's about killing her to be with them and not him while he's this weak and ill. And if the prognosis is bad? She wants, understandably, to spend her time with her son. Not have him at home with a nurse. He's on monitors even at home. The heart one isn't showing anything too bad at home, but the arrhythmias at his school? His fatigue, his decline, his alarms going off every night?

Her husband, whom I've known as long as I've known her, and they've been together since 1984, btw? Suddenly she is finding out what kept him out late... on FACEBOOK. Oh sweet mother of God. I can't express how upset I am with him for this. He's a better man, I really believe(d) that. I mean, when our *cats* are terminal, my hubby cuertails his social life, if onlky so I can have a break from caretaknig, and taht's *pets*. This is his only child. I *know* in my head -- oh, I know -- he's in Denial Mode, but if he doesn't snap out of that in time? If, God forbid the worst happens? He'll lose his marriage and wife along with his son's life.

I'm still reeling, obviously, or I wouldn't share so much on a public space.

Just, please, pray for my friend. She's so good-hearted. ONe of our other friends (the other BFF of our Terrible Terrifying Trio) is divorced and needs a home and she's letting that person an d that godson of mine (I have 7) move into her in-law suite that was meant for her own dad, until they can get their feet under them. While all this happens, no less. (Her dad refused the in-law suite. Then moved in with her sister, who hasn't got one. The sister isn't laughing, but I think the dad is. He tag-teams her with her teenagers. Every parent's dream, right? Your teenagers and your elderly parent ganging up on you.)

***

OK.

So.

Wow. Ouch. Wowch. Wowchie. Oh...

***

Be warm, safe, dry, and comfortable and comforted. Puma purrs including everyone, and lighting candles to keep us whatever it is a lit candle should keep us.

Morning Leo. So sorry to hear about your friend and ger son. That must be terrifying. I wish I had info that could be helpful, but I don't. Hugs

I'm tired today. It's suppised to warm up but it's going to be damp amd rainy all weekend so it doesn't look like it's actually gonnabe enjoyable. Today's gonna be busy, meeting a friend for lunch and going to see my bf later. I feel bad for not seeing him yesterday, he seemed kinda depressed. Not over me bailing on him, just in general. Anyway..hioe everyone has a good weekend

Oh Leo, I feel so bad for your friend and godson. I do have a friend who has a son who had a very bad heart as a little boy. At about age 7, he received a new heart. He is now in college. I don’t what type of heart trouble he had. But his turned out great. And he was in very bad shape. On constant O2 etc.

Hi Miki. Hope your busy weekend goes well and that you can cheer up bf.

We are on our way to our friend’s funeral right now. 2 1/2 hour drive. And it’s a little snowy, but not too bad. Except the crazy semis.

Crazy me, I did go get hubby yesterday. No one guilted me. I did it to myself. The roads were dry and hubby drove home for me. It all turned out ok.

I was up till after 1am netflixing lol Ya, finally relaxed a bit and ended up not realizing the time? I got so much i need to do and no oomph to do it. I am debating getting some laundry done this morning. In a lot of pain but things need to get done. I will check more in later.

Leo, I'm so sorry and I will be praying. I had a friend when we were 12 yrs old that had cardiomyopathy but they never knew it until he collapsed on the basketball court. Sadly for his family there was no saving him. It was heartbreaking and they had to have counselors come into our school. I don't know anything about your godsons condition. I wish I did. Your friend needs to take a leave of absence from her work. Can't she get FMLA and then decide what she wants to do. I would stop working, I'm with her she needs to be there for him.

Miki, I hate damp weather but I really wish I had that instead of it feeling like 5 degrees outside. We're cold here for the next 2 days. It sounds like you have a good day planned despite the weather. Enjoy your lunch and evening.

ida, I'm glad it turned out ok yesterday for getting your hubby from the airport. Here I thought you finally had a calm weekend, I didn't realize you were going to drive out for her funeral. I hope you have a safe drive and it's a nice service.

Angela, I hope the pain gets better. I'm with you, I'm in a lot of pain but I know things must get done.

It's cold this weekend for me. It feels like 5 degrees outside but we aren't warming up so we are still going to go get groceries. I need some stuff before lunch and dinner and we're low on toilet paper. I really need a jump start, my energy is depleted. I feel like I'm dragging and I feel blah in general about everything from this lack of energy. I'm hoping I can veg in front of the TV a little. I really need it.

Happy weekend.
Leo I went through the same thing with the being dizzy and passing out when I was a teen. Come to find out I have SVT.{supraventricular tach] With meds and not over stressing my heart I have been able to help it work. I don't know if this has anything to do with what your godson is going through but I am praying they find whatever it is and can fix it.
Miki I hope the damp weather this weekend doesn't make you too miserable. Try to find something indoors that will keep your mind busy.
Ida I had a feeling that you would do the driving anyways lol. I know the power of guilting oneself. I am glad that the roads were dry and you got home safely.
Angela I hope you are able to get some work done and do some more netflixing/
Twins I hope you are able to rest this weekend. Maybe watch a good movie with the girls. Dress warm when you go get groceries we don't want you sick too.
I am having a rough morning. My chest is congested and my cough is making my ribs hurt so much. I am going to do nebulizer treatments today and hope it helps.
Hoping you all have a relaxing happy weekend.

Leo, very sorry to hear about your godson. I wish I had some advice, but I don't. I will pray for sure! I hope your friend can take some leave, that doesn't sound right.

Miki, damp and rainy is so blech but I guess that's better than being cold. I hope you get to meet up with your bf and his mood improves.

Ida, glad the roads were OK. Sending extra hugs as you head out today.

Angela, glad you were able to relax. When I'm stressed, I like to netflix too... it can take your mind off of things.

Twins, sending warm tropical breezes and chocolate energy bars your way. I hope you manage to accomplish what you need to. Throw on an extra layer in there.

I needed to go to the pool yesterday for some exercise, but like Twins, I couldn't warm up either. Despite the sun finally being out, my fingers and toes were purple. I tried sitting out in the sun, but it didn't help much. Walked around the garden and did some chores to try and get blood circulating, nope. Hubby said we have a breeze coming from the north so it's no wander I felt a little chilly. Mom said she was glad I didn't go swimming because I would have ended up with a chill. I guess I was feeling guilty for not exercising.

I ended up working on my painting some more. It's a few tropical fish in the ocean with coral reef below layering into the background. Painting the reef has been the most changing part.

My husband tracked in muddy shoe prints all over the livingroom... I feel like scolding him like a bad, little child. I don't like having shoes in the house for this reason, but he continues to wear them and then doesn't clean it up.

He said he may be able to squeeze a movie in today, at a very specific time. Gee, I hope there's a good movie playing then. Sighs.

Btw, I wanted to thank everyone for your kind words yesterday. I agree, fibro has a way of isolating us and is difficult to make / keep friends. Or at least ones who understand and don't judge. It's sad how this illness has stolen our lives. I wish we had transporters like Star Trek and could beam over to each other!

Bed stripped, 4 loads of laundry done, bed remade even washed the mattress protector, plus clothes, bed remade (that killed me the most), 2 days of dishes washed. took a shower and cleaned my book shelf head board and organized it took me about 45 mins. Did a few little things, im pooped out time for lunch! My sugar came down from 207 to 139 with all my running around. The laundry room i have to go outside to get to. My pain is thru the roof so put on clean pjs and am going to crash after i eat.

Thanks Blue. I am enjoying a little bit of peppermint bark i earned it! Didnt eat much lunch, my stomachs not feeling acidy anymore the last couple days just dont feel hungry i think its from pain. The pain is gone in my stomach for about 2 1/;2 days now YAY but not trying caffeine quite yet.

Leo -- Sending good energy towards your godson and his family.
Miki -- Have fun on your date!
Ida -- One boss babe! Way to conquer your challenge and come up with an OK compromise since he drove back.
AngelaJo -- Laundry day here too. Mine is 3 flights down -- all the stairs, ugh.
Twin -- Have a good weekend with the family. Bought so much at the store yesterday the checker said, "Ma'am, how long is it going to take you to unpack ALL this?" Sadly, there were only 5 things on my list when I went in. . .
Autumn -- Hope the nebby treatment works. Those things are wonderful when you feel that way.
Blue -- Your whole body would be blue if you tried to swim here yesterday! I managed 20 minutes outside in my winter coat. Even the dogs were cold so we came in. (Usually Sniffy doesn't notice weather, since she obviously a hunting dog mix.) Sending healing energy Hershey's way too.

So I need to vent a little bit. PuppyDad calls his mom every Friday evening to check on her. We know my SIL calls mid week, so at least there is contact twice a week. He puts her on speaker and you can hear the call all over the house. Well an hour into the convo last night I wanted nothing so much as to sit in my big easy chair, as it was almost 9 PM and I was just getting the chance to sit down for the first time since dinner. He was on the sofa next to my chair, so I motioned and mouthed "can I sit down". He seemed OK with it and his conversation continued. I had about 300 pages of material to read for work, so I was reading though that and taking notes, not at all listening to the convo. Until I heard my name. My MIL was asking what we were doing this weekend. Per usual, PD is working on the current house project. I had to go into work for part of the day for a special event, then had planned to come home and do housework. PD was brief about my plans, saying he didn't know exactly what time I'd be home, but didn't think I was working a full day. Then MIL says, "Well you should let her help you with the house project. That way she can feel like she is contributing to the household."

WTH??? My head kind of exploded, so not sure what she said next. Apparently the 12 loads of laundry I do a week, 9 of it her sons, is not contributing. Also the fact that there is food in the cupboards that is made into nice dinners on a daily basis, not contributing (although he cooks as well.) And apparently all the dishes, cleaning and yard work, including mowing the grass, is also not contributing. Not to mention, I was reading through a 300 page document on a Friday night for my JOB, where they actually pay me and stuff. This, from the woman who will tell you she "can't bother" with housework and "can't bother" doing any laundry but her own (and will tell you she doesn't care if her husband wears filthy clothing because she hopes he drops dead) and "can't do" yard work (OK, so she's in her 80's. We can't all be like my great-grandma, still growing her garden and mowing her grass until the summer before she died, at 83.)

OK I am off to not contribute by putting away 3 loads of laundry that are dry, and doing the 3 loads I hauled to the basement when I got home from work.Where I worked 3 hours shy of a full day. Then, I'll further "not contribute" by cooking some cheesteaks!

Hi girls, I'm still here! I said I would stay close ladt week while off but I was so tired didn't even want to type. After a super busy week, today I bingewatched hunting Hitler. Gee, that's uplifting, lol.

Blue, I still feel isolated and thank you for also saying how aline this thing makes us. All my good friends moved out of town. Family gone, and no-one checking on me anymore except my Aunt. I'm starting to believe the only reason she does is so she and her daughter have something to gossip about. That's why I left Napa. Blue, even with your hubby still feel alone? But he works so I can see that.
I am trying to get better so I can get back out and socialize. Art class blue?

Leo, I have dysautonomia. I had the neurologist put a shot at top of head once when intractable migraines. I also had tachycardia bad until I was put on bystolic. I also had to force exercise...moderately, and pacing. I didn't work at all for almost a year. Then, I went to EECP treatment when my heart was failing and it saved my life. I will pray for him.

Ida, hope u r back safe and sound. That sounds really scary to be on road in tjose conditions. I guess it's pretty bad in a lot of places. We're even expecting icy conditions and winter mix. Twinmom, how's ur stomach? I hope u get some rest.
Autumn, hope u feel better, ugh that doesn't sound fun at all.
Hi to mika and puppymom. AJoe, will u come to my place??!!

Good evening, everyone. We saw a movie, the new reclining seats are awesome. I wish airplane chairs were that comfortable and I look forward to seeing more movies. Mom came, too, but we had to find a way to seat ourselves away from her because she wanted to sit next to us.

I cooked a good dinner with baked homemade mac & cheese (gluten free), purple sweet potatoes, and baked pumpkin slices. I hope to go to church tomorrow, but dread going to *our* church. The pastor has gotten to be so negative. We went to a different one last week. But my husband doesn't want to leave our regular church because all of his friends go there.

Speaking of friends..... I reached out to a friend on Oahu (ex Army) and told her how I'm having trouble making new friends since moving here so now she's planning on visiting for President's day!! I was actually asking when I could come visit her, but this is better :)

PuppyM, your MIL is ridiculous and has no idea what she's talking about. Sounds like she's projecting herself onto you.

JP, what a rough topic to binge watch lol. You must be made of iron... I can only handle one episode at a time when it comes to such serious topics. Yeah, my husband tends to be in his own world.... if he's not at work, he's busy with rigorous activities I can't participate in (eg: hiking & surfing). I try to tag along with him and drive along dirt roads, pick berries, avocados and guavas, swim at the beach, but because I tire out long before him, he'll drop me home and head out for hours more till he's satisfied. Meanwhile, I'm at home paying for it with ouchies. That's what I get for trying, sigh. No art class, just hobby on the side.

Diabetes mixed with Seroquel I took for my PTSD 7 years ago, and my doctor mistook it for thyroiditis, treated me by mistake for that with radiation for a year, and I ended up with damaged kidneys that could only produce 40 per cent. So with 60% of my blood oxygen gone, by the time blood got through my body to my extremities, it didn't have enough oxygen in it to feed the nerves in those...

Running late so quick recap:Ouch!Cats!OhcrapIoverdidit!***And that's my day.If you hear a scream of "DAMMIT!" that's me trying to get LilMiss *out*. Her owners complain she and Shadow won't go inside. Oh they do. They do...

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