In 2002 I got the earth shattering news that I could possibly have Multiple Sclerosis. In 2003 that news was confirmed. I was 29 years old. I wanted to start this blog to go over the last few years of dealing with this illness and look forward to the future as it happens. If I can give hope to just one person, that life isn't over when you get life changing news, then this will have been worthwhile!

MY BIRTHDAY!

Wednesday, 17 November 2010

Hi everyone,I'm having a really fatigued day today :(Part of that is because I said goodbye to my Dad today, as he went back to work. My dad is a Captain in the Merchant Navy. This means he works on cargo ships. (The big ones that you see out at sea) He generally works around the British Isles, Ireland, Germany, Scandinavia and the Mediterranean.So he has gone away today and he won't be home again until about February next year. I have grown up with my Dad doing this job. He has had breaks from it every now and then but the majority of his working life has been on the sea. I find it so much harder to say goodbye these days. I guess because I am older and he is older and it means more now.

So I am warn out today. I am also struggling with pain a lot today. That zaps loads of my energy too. I am trying so hard not to let it affect me, but it is taking up all my energy to do that. It is SO cold too. I know I am tired and so I feel the cold a little more because of that, but it also affects my pain too. Does anyone else have that? When it is very cold in Winter or very hot in the Summer, I suffer even more with the pain. People ask me which is worse, hot or cold, but I can honestly say that both cause me problems!How annoying is that??Anyway it was just a quick post today to wish my Dad a safe voyage!Hope everyone is coping well with the cold,Love & hugsXxXxX

PS I must say a quick Thank you to all those who have been leaving comments for me. I really appreciate hearing from people and I do read all the comments.....even if I don't always reply to them.......sorry!!!XxXxX

3 comments:

Yes Amelia Cold can make us feel more tired at best and in more pain at worst. Where is your worst pai ? have your tried Capsaicin ? this is an ingredient of chill peppers and is often used medically in an ointment to treat the pain of peripheral neuropathy.It is very hot and often needs an anesthetic cream applied first. However it can be taken in tablet/capsule form as it binds to a protein known as TRPV1 that resides on the membranes of pain and heat sensing neurons.

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About Me

I am 43 years old and I have been happily married to Martin since 1998! We have 2 cats who are our beautiful babies! Oh yes and I have Multiple Sclerosis. I was diagnosed in 2002. I stopped working in 2004 but got a part time job at Asda from 2006 - 2009.
One of my main passions was being involved in theatre, especially singing and I have continued that by organising 3 charity concerts with Martin. We have raised over £6000 so far. I also make my own cards, when the MS lets me!
Welcome to my world......nice to meet you and feel free to join in! :-) XxXxX