Share this post

Link to post

Share on other sites

I believe he does. He has had celiac disease since 2003 and they discovered Diabetes at same time. I will text him about BE later today. I know he gets reg checks for it and I do remember him saying it was hard to manage (BE).

Share this post

Link to post

Share on other sites

I am supposed to have an endo at some point to see what damage my GERD has done. I had it very badly for years...until I went gluten free. Sometimes I need a tum - but I have had no medication for it since going gluten-free. So to answer - GERD can cause BE and Celiac/Gluten Intolerance can cause GERD. Hope that helps!

Share this post

Link to post

Share on other sites

I did text him but sometimes it takes a few days. He is undergoing a full house renovation and he teaches. He will get back to me - I'll keep bugging him! He needs that sometimes. :-) But I will respond as soon as I hear what he says. It makes sense what beebs said.

Share this post

Link to post

Share on other sites

Just heard from BIL - he said the only thing that helped him was medication and it is no longer a problem. He does get it checked every year. So it is hard to say if just gluten free helped him or just meds or both. Not sure if this helps or not.

I'm not sure if it's heartburn or not, but I wake up in the morning with terrible burning in my stomach all the time. I have eliminated so much and I am on prilosec and carafate... My doctor says I'm just hungry... I don't think hunger is supposed to be a burning pain...

Any idea of how long it took for the GERD to go away after going gluten free? I know everyone is different, so answers may vary.

Share this post

Link to post

Share on other sites

For me it was instant - I went gluten-free and the GERD went away that day. I have it really mildly occasionally = but I was medicated for years (which wasn't working) and I haven't been on meds since.

Burning pain that relieves when you eat?? Sounds like it could be Stomach ulcers! Which can also be cause by Celiac!! Have you ever been put on proton pump inhibitors or anything? Do you have any other symptoms - excessive belching or anything like that?? Going gluten free will not fix ulcers - you would still need medication (nexium, parriet etc).

Share this post

Link to post

Share on other sites

For me it was instant - I went gluten-free and the GERD went away that day. I have it really mildly occasionally = but I was medicated for years (which wasn't working) and I haven't been on meds since.

Burning pain that relieves when you eat?? Sounds like it could be Stomach ulcers! Which can also be cause by Celiac!! Have you ever been put on proton pump inhibitors or anything? Do you have any other symptoms - excessive belching or anything like that?? Going gluten free will not fix ulcers - you would still need medication (nexium, parriet etc).

Yes, I have been diagnosed with ulcers. The burning pain in the AM does go away when I get up, move around, and eat something. I am on prilosec (a PPI) and carafate (to coat the stomach), although I still have the burning. I have another endoscopy scheduled in January . Sounds like you have experience with ulcers?

I am hopeing if I go gluten free the ulcers won't come back once they are healed.

Another symptom I have is feeling extra full after eating and nauseous... common with ulcers I believe. Have you had ulcers before?

Share this post

Link to post

Share on other sites

Yes- I've had two neg for H.Pylori, haven't had one since going gluten free - my last one was just before I went gluten free took nexium for it and then haven't needed anything since.

Right on. You give me hope! I have been tested for H. Pylori as well, which was negative, and I have been struggling with them ever since. I have tried prevacid, prilosec, nexium (with carafate of course). Since ulcers are slow to heal I'm hoping after a month or two and being gluten free I can keep those nasty things away.

Share this post

Link to post

Share on other sites

Yeah - severe heartburn (GERD) that I took medication for for years and years and it did nothing. I couldn't drink water - it would make it so much worse and sometimes it wouldn't even go down:( But - all good now that I'm gluten free, no meds needed and GERD is all but gone (have little episodes here and there) . Have you started the gluten-free diet yet??

Share this post

Link to post

Share on other sites

Yeah - severe heartburn (GERD) that I took medication for for years and years and it did nothing. I couldn't drink water - it would make it so much worse and sometimes it wouldn't even go down:( But - all good now that I'm gluten free, no meds needed and GERD is all but gone (have little episodes here and there) . Have you started the gluten-free diet yet??

Yes, but it has only been about a week, so I need to give it more time. Did it take awhile for you to feel better and begin stopping your medication?

Share this post

Link to post

Share on other sites

hopefully you are aware the carafate needs to be taken on a totally empty stomach, nothing to eat 2 hours before nor 1 hour after? if there is a chance that the pain you are feeling is esophogeal, the suspension may be a better form. Good luck

Top Posters +

Upcoming Events

NEW ORLEANS GOURMET
GLUTEN-FREE mini GETAWAY
March 24 ~ 27, 2019
We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun. We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.
Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.
Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.
This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before. Check out our website for the complete itinerary and cost.
Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.
If you have any questions just give us a call at 410-939-3218.
Bob & Ruth
info@bobandruths.com
(410) 939-3218

Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.

The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.

The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.

The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com

Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts.
Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
ABOUT THE NOURISHED FESTIVALS
Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com

Forum Discussions

I do not have any ideas except to research other autoimmune disorders. Once you have one, you can develop more AI issues. Any possibility of drug side effects? For example the FDA has a black box warning in a class of antibiotics called fluoroquinilines (e.g. Cipro by Bayer). These can cause tendon issues.
Here is a list of autoimmune disorders. Not all are here, but it is a start.
https://www.aarda.org/diseaselist/
Ones associated with vertigo:
https://www.hindawi.c

And he needs to be super strict in his gluten free diet! SUPER strict, not just low gluten. No cross contamination, NONE.
I am so sorry, there are no short cuts with the testing. It flat out sucks but there you have it.
Welcome to the forum!