Monday, April 14, 2008

I took Isaac to the peds this morning...he has a BAD double ear infection and had a temp of 104 while we were in there! So...he's just on antibiotics adn if the fever isn't gone in 3 days, then we return.

I'm in a poopy mood...I had to wait an HOUR at the pharmacy for our meds (after I dropped them off 3 hours before), they couldn't get all of them to go through insurance (of course) and I'm snotty with little sleep...and CHRIS and ELI were out of school today (all of that together is about to push me over the deep end).

So...I'll post tomorrow...and hopefully we're all in a chipper mood and our snot is gone.

Are you giving him something for that fever? You didn't mention so I was wondering. Isaac, I hope you start feeling better real quick. Mom has a surprise for you, for next week. You probally won't like it though. If he is better will they continue as scheduled on the 24th? Abby

Hello, all! Isaac, you sound a lot like our little Nevaeh. She also has TOFw/PA MAPCA's, as well as right aortic arch. She doesn't have the DiGeorge or the cleft palate, but she does have oral aversion & has had a feeding tube all but about 3 weeks of her life! Amazing the similarities! I found your blog through Arianna's, as I've been checking in on other little heart buddies! Hopefully all goes well with the antibiotics & the snot is gone. We too have been having difficulty with the wretching/ gagging issues at night, so I understand completely! Feel free to check out Vaeh's blog, or email me anytime! http://nevaehkaylenewalp.blogspot.com/ Take care:0)

Isaac

About Isaac

This is the blog following the adventures of Isaac, our third son. He was born (3/28/07) with Severe Tetralogy of Fallot, Pulmonary Atresia, VSD, Major Aortopulmonary Collaterals, Right Aortic Arch, DiGeorge Syndrome, and Cleft Soft Palate. We appreciate all of the support we have received from our friends and family and welcome you into our hearts and lives as we continue on this journey.

As of Nov. 2009, he's FINALLY sitting up and crawling!! He's such a quiet little man...no babbles yet...but, when he starts talking...I'm sure he'll never stop! He's solely g-tube fed, but has started 1-2 jars of baby food a day (it might take a while...but, he'll learn to LOVE food like his mom and dad!) His favorite thing is "Yo Gabba Gabba"...he's glued to that show ALL DAY, EVERYDAY

To date he's had....1 stomach surgery, 2 open heart surgeries, 6 heart caths, and 1 cleft palate repair (where they also did a little work to his tongue and released some webbing on the inside of his cheeks).

Chris

Chris....was born on September 9, 1994. He was the only child for 8 years before we had Eli (see a pattern here...I need a break between kiddos!). Chris has been home-schooled from 3rd grade-7th grade...and now he's back in public schools in the 10th grade...and I'm proud to say that he's on the A/B honor roll!!! He's currently trying out for the wrestling team and goes to Boy Scouts. He likes video games...and that's about it. Chris is ready to start driving a car, get a job, and go to college (I'm not sure why he wants to grow up so fast!). He has such ambition and loves to share...and THANK GOODNESS he doesn't have a girlfriend yet (my nerves couldn't take it)!!

Elias

Eli...was born on June 13, 2002. He was our baby for 5 years before we had Isaac....so, he's getting use to being the little brother of Chris and the big brother of Isaac. He loves Star Wars, Hilary Duff, and Thomas the Train (not necessarily in that order!). He's currently a 2nd grader and loving school (where he LOVES to read!). He has such a tender heart and feels compassion for everyone...but, also is a tattle-tale much of the time!