At Penn, our radiologists review outside films and images all the time. There are also other imaging studies done to evaluate neuroendocrine cancers such as MIBG scans, Octreotide scans, MRIs, etc.

As for physicians who are experts in Neuroendocrine tumors, there are many in the U.S. and abroad. They may not be in your immediate area, but when you have a rare disease, it is worth traveling to get expert input into your care. The Carcinoid Foundation maintains a list of experts around the world.