Enter FOCUS Families site by double clicking the area in which you
live on the world map or country link.

Optic Nerve Hypoplasia,
the under development of one or both Optic Nerves, was once considered
rare but is now the leading cause of pediatric congenital vision loss
in The United States of America. Septo Optic Dysplasia (formerly known
as DeMorsier's Syndrome) has been described as an individual having Optic
Nerve Hypoplasia, Endocrine dysfunction (for example: Growth Hormone Deficiency)
and/or absence of the Septum Pellucidum.

FOCUS Families provides
"Information, Education and Support"  to those affected
by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world
wide. FOCUS Families has divisions in Germany, The United Kingdom and
The United States of America. The information on each division's link
is the same; however each has specific information about regional FOCUS
Families events and gatherings. Look for future world links to include:
Italy, Australia and Canada!

FOCUS
Families was borne from several families and their shared necessity: how,
as parents, do we better understand our child's diagnosis? Today, FOCUS
Families is able to offer its support to you by:

Maintaining an
informational web site -that is the only one of its kind
* Hosting
an on-line email support group, with more than 400 registered members
* Moderated online chats

Having divisions
in The United States, the United Kingdom & Germany

Parent networking

Together, with you
- the parent, the grandparent, the aunt/uncle, the caregiver, the individual,
the teacher, the physician- we continue to gain knowledge about ONH/SOD
how it affects each individual.

This website has been
designed to help empower parents of children with ONH/SOD. All the information
herein is subject to opinion. If you suspect your child may have ONH/SOD
it is recommended that you seek professional advice from a certified pediatric
ophthalmologist. No one individual or company connected with this website
assumes any liability or responsibility
for it's contents.