Better Outcomes Through Education.

The FDA recently granted the status of ‘orphan drug’ to APB-102, a potential gene therapy for familial ALS. Orphan drug status is given to terminal diseases that affect small numbers of patients. John Reilly, Chief Executive Officer and co-founder of Apic Bio says they plan to open a clinical trial for APB-102. This trial will[...]

A recent study published in Nature may give ALS patients some insight into how gut microbes affect the progression of ALS. What are microbes? Inside every person is a microbiome, a community of microorganisms that are also known as microbes. Microbes inhabit a person skin, mucosa, and gastrointestinal tract, but also live in plants, animals,[...]

Although not usually linked together, a recent study in Neurology shows how prediagnostic weight gain and ALS may be linked. Based in Norway, researchers collected BMI from 85% of citizens, living in 18 out of 19 Norwegian counties, aged between 20 to 70, and who were living in Norway between 1963 to 1975. Researchers also[...]

When it comes to ALS, everyone is different. The rate of progression of the disease varies from patient to patient. Because of this variation, doctors may find it hard to predict what course the disease will take. Thankfully, by using the ALS Functional Rating Scale (ALSFRS) or the ALSFRS-R, doctors can make this task a[...]

Despite there being no cure for ALS, there are a variety of treatment options for those affected by the disease. One of these being physical therapy. Physical therapy is one of many treatments that can help reduce pain and instill a feeling of independence in ALS patients. Why physical therapy? Physical therapy is very beneficial[...]

Caffeine is a large part of people’s diets, whether it’s in the form of coffee, tea, or a soda. According to an article on Food Chemical Toxicology, people aged 50-64 have the highest caffeine intake in the US. In the same report, it said that roughly 85% of the US population consumes at least one[...]

Motor neurons and nerve cells in the brain and spinal cord control muscular movement in the human body—when these are destroyed, ALS patients become disabled. Oftentimes, their eyes are the only part of the body that are not paralyzed. This leads them to become less able or unable to participate in everyday activities. Among these[...]

Please join us on Friday, November 17, 2017 as the Hugo Boss City Creek men’s clothing store in Salt Lake City celebrates their bi-annual sale. This includes exclusive offers, discounts, and sales that are just in time for the holiday season. Their store is generously donating 10% of the the day’s purchases to the CrowdCare Foundation.[...]

Single Cyclist, 3000 miles, One and a Half Weeks . . . All for ALS! Beginning on June 14, 2016 Mike Conti is using the Race Across America (RAAM), a 3000 mile bike race, as a symbol of the fight to end ALS. Unlike other bike stage races, RAAM is one continual race; once the clock starts[...]

The National Ability Center in Park City, Utah is a place where many people have their best day ever. This center is a global leader for adaptive recreation, serving individuals with a wide range of disabilities. The National Ability Center empowers individuals of all abilities by building self-esteem, confidence and lifetime skills through sport, recreation[...]