CLINICAL TRIALS PORTAL

Below is a list of the major international or national clinical trial registries available online. Please note that not all registries might include brain tumour clinical trials at the moment, but do consult these periodically as the situation for listings changes over time.

There are also many other websites providing information about trials at individual hospitals or for individual types of brain tumour, and many national patient organisations also provide access to information about clinical trials.

There is no one totally comprehensive website - although ClinicalTrials.gov is generally accepted as the best in this respect – and there is considerable overlap in coverage between the sites. It is important to check the sources utilised by each. Some of the sites may have commercial elements to them.

Ease of searching the websites varies. In some, there is a “controlled vocabulary” (ie one can select from a drop-down list) but in others it may be necessary to search for all likely synonyms and American as well as European spelling (this may be possible via a “wild card” search, for example using the word and asterisk: tumo*).

Some of these links provide matching services whereby patients can register their interest in taking part in clinical trials for their condition.

If you know of a clinical trial registry or database which is not listed, please email us at chair@theibta.org