I’m about to turn round and look at the empty shoes of *400 Missing* people living with ME at #SouthamptonMillionsMissing , May 12th 2018

This picture amazed and delighted me. My friend of 30 years, who I can never see due to my being bed-confined and unable to receive visitors, is not even a member of the ME awareness-raising movement. But, created this silhouette to represent me, just in case we marched on the castle with flaming torches! At the #DurhamMillionsMissing Visibility Action May 12th 2018.

Here I am at #DurhamMillionsMissing. May 12th 2018 There’s a certain irony about this photograph. My posterboard is in my wheelchair, but in reality I, myself, have been too ill to physically sit in a wheelchair and maintain an upright position since 1993.

This is Isla. She is my/ our youngest supporter so far. Isla is 5 years old and she and her mother Kirsty shared my story at the #ManchesterMillionsMissing UK, May 12th 2018.

Isla looked at my photo and was very worried about me.
If only Jeremy Hunt, UK Minister for Health & Care would show the same humanity.

Let’s encourage new generations and acknowledge their compassion. — with Kirsty Edgson.

With Claire Tripp at Radio Solent raising awareness of ME and very severe ME during ME Awareness Week May 2018.
Credit: Tom Mitchell’s fantastic advocacy seen on his posterboard bottom right. You can read all the words! — with Tom Mitchell.

Another very special friend who also travelled to Durham and who still supports me *after 25 years* with practicalities and with the hellish, relentless bureaucracy that is life with ME, in the UK 2018. — with Dawn Young.

Like this:

19 posterboards and a banner heading to Sunderland tonight ready for the Tyne & Wear ME Support Group’s Gathering and Photo-call at the foot of Penshaw Monument 1.30pm -2.30pm on Saturday May 12th 2018.

💙💙💙

And, from dusk onwards (9pm), the monument will be lit up in blue to acknowledge M.E. Another photo opportunity for those who are still up and are able to be there.