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My Great Strides Story

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I'm reaching out to yall because we are participating in Great Strides: Cystic Fibrosis 5K in June and we need your help! This cause hits close to home for us because our sweet friends in Atlanta, Melissa and JB Pinkston, have a little boy Grayton who is currently battling CF.

CF is a life limiting genetic disease that affects the lungs, pancreas, andother vital organs. Grayton's daily regimen involves taking pills (540 pillsa month) before each meal in order to give his body the ability to absorbthe fat and nutrients from food. Putting on weight is a constant challengefor those living with cystic fibrosis, especially for G as his pancreas has nofunctionality. Twice, every day he does his breathing treatment called CPT(Chest PhysioTherapy). He wears a vest that's connected to a machinethat will shake him to help move the mucus in his lungs. He spends 30minutes twice a day strapped to this machine (28 hours per month). Asyou can imagine, it's a challenge to keep an 18-month- old entertained andconstrained during this time. His favorite vest time activities includestacking shapes/blocks and reading a book about trucks. Dump trucks andtractors are his favorite! His Dada is also trying to get him to play aharmonica to help with lung capacity. He takes an acid blocker 2X's a dayand liquid multivitamin are also necessary to his daily routine and weightmanagement.

There has been so much development in the last few years and we want tocontinue this momentum by adding tomorrows to all of those living withCF. The real progress has been made in the search for a cure, but the livesof people with CF are still cut far too short. There still is no cure for thisdevastating disease. By walking today, we are helping add tomorrows tothe lives of people living with cystic fibrosis. Will you join us? Support us bymaking a donation to our Great Strides fundraising campaign today!

Great Strides is a fun, family-friendly 5K that raises awareness and supportfor people with CF and their families and I’m pleased to be leading the SanFrancisco chapter. The walk is June 2nd with check-ins starting at 9am atthe National Mall, we’ll see you there!

WAYS TO HELP:

To walk with us: click on the "Join our team" button and select "walker" From there you can make a donation and/or start yourfundraising. Joining our team does not require a donation orfundraising, however, fundraising IS encouraged! The more resources wehave for research the better! This is the inaugural walk for DC so we are really looking for a lot of walkers!

To donate: click to make your donation or select a team memberfrom the list below. All donations are tax deductible.

To Help us fund raise: Click on the Join my Team button and select virtual walker. You folks are our online force who are driving donations in yourcommunity and diligently bringing in money. Once you register you willthen be given a link that you can share with friends and family.

Help Share Grayton story: Telling Grayton story is HUGE ineducating others that a cure is needed and even better when a face isput with the cause.

Your support and donations are giving their family what they need-more memories with our Grayton.

Connect With Us

Foundation-Sponsored Indoor and Outdoor Events and Gatherings

The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.

To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.

To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.