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September 2, 2011

"It's worth entertaining the hypothesis."

At yesterday's appointment, Bertrand's neurologist didn't shoot down my proposed thesis! Her exact words were: "It's worth entertaining the hypothesis." I'll take it. It's way better than the facepalm I was expecting. :)

She referred me to Bertrand's GI doctor for vitamin deficiency and dosing issues. He responded quickly, but his answers sounded like he really didn't understand the question: "Could a prenatal hepatic insult result in severe vitamin A & B12 deficiencies?"

I've come to the conclusion that I finally don't care if the doctors are on the identical page as me. They will eventually catch up. I know what needs to be done. I've got my 10,000+ hours worth of expertise in Bertrand.

That said, I am utterly exhausted from playing with 2 active, happy kids all day! More videos, pictures, and explanations will have to wait just a bit longer.

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The Bertrand Might Research Fund has been established at Sanford Burnham Medical Research Institute, a 501(c)3 charitable organization. Your donation will help Dr. Hudson Freeze’s lab begin to unravel the mystery of N-Glycanase deficiency, and hopefully find a treatment in the near future.

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Now I Can is a nonprofit 501(c)(3) charitable organization dedicated to helping disabled children reach their greatest potential through intensive physical therapy. Bertrand has benefited greatly from sessions there: Oct 2011, Dec 2011, May 2012, Aug 2012. His next session will be in July 2013.

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