Health Supervision and Clinical Practice Guidelines

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Within the Portal

Keeping track of the most current, evidence-based guidelines can be a challenge for busy clinicians. The following guidelines
are relevant to primary care of many children with special health care needs. The Diagnoses & Conditions modules in the Medical Home Portal identify key guidelines for specific conditions.

Clinical Guidelines for All Infants, Children, and Adolescents

Health supervision and clinical practice guidelines typically are developed and/or adopted by national organizations, such
as the American Academy of Pediatrics (AAP), expert working groups, or other knowledgeable bodies. These organizations periodically
review and update the guidelines or decide to stop using them if they are no longer the standard of care (or if resources
are lacking to update them).

Clinical practice guidelines provide an evidence-based framework for clinical decisions and include recommendations for optimizing
patient care. The Pediatric Clinical Practice Guidelines & Policies, 17th Edition (AAP) is a book that is periodically updated and endorsed by the AAP. The 17th edition was published 2017. The book includes practice
guidelines for many diagnoses ranging from autism spectrum disorder to urinary tract infections. It also contains policies
ranging from addressing early childhood emotional and
behavioral problems to preventing obesity.

Practice Guidelines for Children with Special Health Care Needs

AAP-endorsed practice guidelines can assist primary care providers in caring for children with special health care needs.
Some of these are cross-cutting, looking at practice models to implement team-based care and patient- and family-centered
medical home models, whereas others are specific to a certain medical or genetic condition.

Guidelines for specific conditions can be found in each of the Portal's Diagnoses & Conditions modules by selecting a condition name from the list and scrolling to the Practice Guidelines section of the module.

The following are particularly relevant to the overall care of the child or adolescent with special health care needs:

Council on Children with Disabilities.Care coordination in the medical home: integrating health and related systems of care for children with special health care
needs.Pediatrics.
2005;116(5):1238-44.
PubMed abstract / Full TextAAP policy that helps primary care clinicians connect children and their families with appropriate services and resources
in a coordinated effort to achieve good health.

American Academy of Pediatrics Council on Children with Disabilities.A consensus statement on health care transitions for young adults with special health care needs.Pediatrics.
2002;110(6 Pt 2):1304-6.
PubMed abstract / Full TextA policy statement providing guidance on how to seamlessly transition services for young adults to adult health care providers
to best optimize function for the individual with special health care needs.

Adams RC, Tapia C.Early intervention, IDEA Part C services, and the medical home: collaboration for best practice and best outcomes.Pediatrics.
2013;132(4):e1073-88.
PubMed abstract / Full TextPublished in 2013 and reaffirmed in August 2017, this clinical report provides information for primary care providers about
early intervention services and optimal partnership and referrals.

Murphy NA, Carbone PS.Parent-provider-community partnerships: optimizing outcomes for children with disabilities.Pediatrics.
2011;128(4):795-802.
PubMed abstract / Full TextPublished in October 2011 and reaffirmed in August 2017, this clinical report details the policy regarding optimal partnership
among the primary care medical home, the family, and communities to address the mufti-faceted needs of children with chronic
and complex conditions.

Elias ER, Murphy NA.Home care of children and youth with complex health care needs and technology dependencies.Pediatrics.
2012;129(5):996-1005.
PubMed abstract / Full TextAn AAP clinical report, reaffirmed in 2017, which discusses topics for families and providers to consider when transitioning
a child from the hospital to home.

Percelay JM.Physicians' roles in coordinating care of hospitalized children.Pediatrics.
2003;111(3):707-9.
PubMed abstract / Full TextRevised in 2010 and reaffirmed in August 2017, this clinical report details the policy regarding optimal partnership among
the primary care medical home and subspecialists involved in inpatient care of a sick child.

Committee on Hospital Care.Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations.Pediatrics.
2013;132(5):966-972.
PubMed abstract / Full TextAAP policy for pediatric palliative and hospice care with guidance for primary care clinicians about end of life care.

National Consensus Project for Quality Palliative Care.Clinical practice guidelines for quality palliative care.2013; https://www.nationalcoalitionhpc.org/ncp-guidelines-2013/Clinical practice guidelines to formalize and delineate the provisions of high-quality community-based palliative care for
adults, children, and families living with serious, chronic illness; endorsed March 2014 by the American Academy of Pediatrics.

National Guideline Clearinghouse (HHS)Summaries of evidence-based clinical practice guidelines for adults and children; maintained by the U.S. Department of Health
and Human Services Agency for Healthcare Research and Quality.

Pediatric Clinical Practice Guidelines & Policies, 17th Edition (AAP)Published in 2017, this book includes practice guidelines for many diagnoses ranging from autism spectrum disorder to urinary
tract infections. It also contains policies ranging from addressing early childhood emotional and behavioral problems to preventing
obesity. The 17th edition was published in 2017 and is endorsed by the American Academy of Pediatrics.

Authors

Page Bibliography

Adams RC, Tapia C.Early intervention, IDEA Part C services, and the medical home: collaboration for best practice and best outcomes.Pediatrics.
2013;132(4):e1073-88.
PubMed abstract / Full TextPublished in 2013 and reaffirmed in August 2017, this clinical report provides information for primary care providers about
early intervention services and optimal partnership and referrals.

American Academy of Pediatrics Council on Children with Disabilities.A consensus statement on health care transitions for young adults with special health care needs.Pediatrics.
2002;110(6 Pt 2):1304-6.
PubMed abstract / Full TextA policy statement providing guidance on how to seamlessly transition services for young adults to adult health care providers
to best optimize function for the individual with special health care needs.

Committee on Hospital Care.Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations.Pediatrics.
2013;132(5):966-972.
PubMed abstract / Full TextAAP policy for pediatric palliative and hospice care with guidance for primary care clinicians about end of life care.

Council on Children with Disabilities.Care coordination in the medical home: integrating health and related systems of care for children with special health care
needs.Pediatrics.
2005;116(5):1238-44.
PubMed abstract / Full TextAAP policy that helps primary care clinicians connect children and their families with appropriate services and resources
in a coordinated effort to achieve good health.

Elias ER, Murphy NA.Home care of children and youth with complex health care needs and technology dependencies.Pediatrics.
2012;129(5):996-1005.
PubMed abstract / Full TextAn AAP clinical report, reaffirmed in 2017, which discusses topics for families and providers to consider when transitioning
a child from the hospital to home.

Murphy NA, Carbone PS.Parent-provider-community partnerships: optimizing outcomes for children with disabilities.Pediatrics.
2011;128(4):795-802.
PubMed abstract / Full TextPublished in October 2011 and reaffirmed in August 2017, this clinical report details the policy regarding optimal partnership
among the primary care medical home, the family, and communities to address the mufti-faceted needs of children with chronic
and complex conditions.

National Consensus Project for Quality Palliative Care.Clinical practice guidelines for quality palliative care.2013; https://www.nationalcoalitionhpc.org/ncp-guidelines-2013/Clinical practice guidelines to formalize and delineate the provisions of high-quality community-based palliative care for
adults, children, and families living with serious, chronic illness; endorsed March 2014 by the American Academy of Pediatrics.

Percelay JM.Physicians' roles in coordinating care of hospitalized children.Pediatrics.
2003;111(3):707-9.
PubMed abstract / Full TextRevised in 2010 and reaffirmed in August 2017, this clinical report details the policy regarding optimal partnership among
the primary care medical home and subspecialists involved in inpatient care of a sick child.