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Category: Assistance for people who have CF

Patient Assistance Programs

AbbVie CREON® CFCareForward Patient Support Program offers nutritional services to eligible patients, as well as financial and educational support for patients and families.http://www.creon.com/CFCareForward
1-855-227-3493

The Cystic Fibrosis Foundation has announced the recipients of its second annual Impact Grants. The Impact Grants Program provides funding to unique projects by and for people with cystic fibrosis (CF) and their family members. CF is a rare, genetic disease that progressively limits the ability to breathe and ultimately causes premature death.

The United States Adult Cystic Fibrosis Association (“USACFA”) offers the Lauren Melissa Kelly Scholarship award each semester, in honor of Lauren Melissa Kelly. The scholarships of up to $2500 are awarded to adults with cystic fibrosis who are pursuing career certifications, associates, and bachelor and graduate degrees.

Please find scholarship criteria and requirements on our website and direct any questions to scholarships@usacfa.org.

A fall 2017 scholarship recipient, Elizabeth Shea, has shared with us how her college experience has been shaped by having CF and all that she has been able to accomplish through the help of our scholarship and her dedication to hard work and passion in performing music. In her own words:

As a winner of the USACFA scholarship for the fall semester of 2017, I am fortunate to have the opportunity to share some of my experiences as a college student with CF. I thought it might be helpful to kids who are applying to colleges now, or those who are in college deciding on a major, to hear a little about what I’ve done and why.

First I should say I am now a junior at Stetson University. I play flute and I am a double major: music education and music performance. I added the second major at the end of my sophomore year. I also joined the music sorority Sigma Alpha Iota in my sophomore year. Both decisions have had a big impact on my life at college.

Music education was my original major, and believe me, it kept me very busy. Between classes, private lessons, multiple ensemble rehearsals, mandatory recital attendance, private practice, classroom observations and studying, sometimes I hardly have time for lunch. But, I knew that if I added a performance major, my playing ability would be seen as more competitive down the road when I’m applying to graduate school, or even in competing for a teaching job. So, I went for it.

My decision to join a sorority was also significant. Not only am I a member, I am now the treasurer of our chapter. With weekly chapter meetings, events, executive board meetings, financial reports, banking, etc. I’ve had to dedicate a decent amount of time to SAI. But the payoff has been great. The sorority gives me an awesome group of close friends who all share my love of music. I’m able to socialize with them and not just spend time in classes, performing and studying with them. I’m also getting some valuable experience being in a leadership role with responsibilities that are new to me.

So, as you can imagine, I’m really, really busy this year. I’ve had to be very careful to keep up with my medical treatments so that I can stay healthy. Bottom line is, don’t assume that because of CF you have to limit yourself or skip things. I might have to work a little harder to keep up with everything that I’ve added this year, but I am enjoying all the new challenges. Of course, this year is also harder because I’m a junior performance major and so I am expected to perform at a higher level. No pressure, right? But I think I’m up for it. Just try things and see what you can do. You can always cut back if you end up overwhelmed, but if you don’t try, you will never know if you could have done it!

USACFA Scholarship Opens Today, June 1st 2017-June30th for Fall 2017!

Please share with young adults who would be interested and qualified!

The United States Adult Cystic Fibrosis Association (USACFA) is excited to offer the Lauren Melissa Kelly Scholarship award for the Fall semester 2017. The scholarship will range from $1500 to $2500 and be awarded to adults with cystic fibrosis who are pursuing career certifications, associates, and bachelor’s degrees.

Criteria:

The individual must be a United States Citizen and over the age of 18 years old.

The individual must have a positive diagnosis of cystic fibrosis.

The individual must be pursuing a bachelor’s degree, associate’s degree, or certificate.

The individual should not be an immediate family member of someone on the USACFA board.

Requirements to include in the application:

The USACFA Scholarship application form (includes the 3 essays)

A copy of an official transcript from high school (and current college if you have completed coursework)

A copy of proof of enrollment for the Fall 2017 or Spring 2017 semester

A resume

A letter from the doctor/clinic on letterhead confirming cystic fibrosis diagnosis

A headshot

Deadlines:ALL requirements must be sent in PDF or other appropriate digital format to scholarships@usacfa.org by Friday, June 30th, 2016 at 11:59 pm EST.

Cystic Fibrosis Foundation Announces Recipients of First Annual Impact Grants to Programs That Serve People With CF and Their Families

The Cystic Fibrosis Foundation has announced the recipients of its first annual Impact Grants.

The program provides funding to support people with cystic fibrosis who are creating unique projects in their communities that serve people with the disease and their families. Cystic fibrosis is a rare, genetic disease that causes chronic lung infections and premature death.

The 2016 grants award $10,000 each to seven diverse programs across the country — from one that teaches singing as an outlet for creativity and wellness, to others that provide personal fitness and health training to individuals with cystic fibrosis. Recipients were chosen by the CF Adult Advisory Council, an external panel comprised entirely of adults with the cystic fibrosis, in partnership with the CF Foundation.

“People with CF have the greatest insights about how to live with this disease,” said Drucy Borowitz, M.D., vice president of community partnerships at the CF Foundation. “We are honored to support these organizations that harness the power of the CF community to help people with this disease and their families live better lives every day.”

The grant award recipients include:
The Cystic Fibrosis Lifestyle Foundation (CFLF), a nonprofit organization that helps people with CF maintain a healthy lifestyle. The CFLF provides assistance to children and adults with CF who demonstrate a financial need and personal desire to improve their physical wellbeing.

The United States Adult CF Association (USACFA), a nonprofit corporation run by adults with CF, offers the community an opportunity to exchange medical and nonmedical information through its quarterly national newsletter, CF Roundtable.

Project CF Spouse is a nonprofit organization dedicated to supporting spouses of people with CF. The grant will be used to grow the 150-person group, expand educational resources and facilitate connections between other spouses as they navigate their own CF journeys.

The sINgSPIRE program, through Breathe Bravely, will provide free, private voice lessons with a qualified voice instructor who will work on strengthening participants’ respiratory systems and improving self-awareness and confidence.

Program NuYou, part of Attain Health, is an online health coaching and personal training program for individuals with CF. Each participant receives time with an integrative health coach and personal trainer, and the program includes weekly check-ins, video conferences and a workout plan that is tailored to individual participant’s needs.

Miles for Cystic Fibrosis supports Project BreatheStrong, which provides grants for children and adults with CF to take part in activities that will improve their mental and physical heath.

Continuing Education for Caregiver/Individuals with CF supports individuals affected by CF through educational workshops that concentrate on various aspects of the disease.