Wednesday, November 11, 2009

So we got the call early this morning that Nicks room was ready.We got here at about 8:00 and tried to get settled in. Of course there is A army of people coming to see Nick,I swear he is famous at this hospital they love him.Nick did his pfts today and they were even lower than at the Dr. Monday. His FEV1 was down to 21, VERY SCARY. I know Nick can get it back to what it was and even better. I think after seeing his number that low he is pretty determined to get rest gain weight and feel MUCH better so he can get those numbers up. Thank you everyone for all of your prayers and thoughts, It means so much to Nick and I. I know some of you were asking about Nicks room number for Cards,Calls and bringing food by. Here it is and Thanks Again.

Room Number 512

Call this number- (904) 308-7300 and ask for Nicholas Brown or room 512

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Meet the Wife

My name is Amanda and my husband Nick has Cystic Fibrosis.We have been together for 9 years and have one small furbaby named Jag.I love all things southern and have A weakness for antiques. I am A DIY kinda gal and love A challenge.I am so greatful to have someone as special as Nick in my life. He has truly turned my world upside down and showed me the meaning of life.I started this blog in hopes that it would help me in my every day feelings and struggles as A CF wife.Along the way I can only hope that our story helps other wives or couples that are effected by CF and educate those who dont know what it is.

Meet Nick-Living with CF

Nick is 26 years old and has Cystic Fibrosis. He is A sports fanatic but is A Gator boy at heart.He continues to beat the odds every day and refuses to give up in his fight to beat this monster of A disease.Nick is in the process of getting his lung function up to avoid being listed for A double lung transplant.He is A fighter and always seems to amaze me. Nick is always optimistic and always seems to find the good in A situation. He is wonderfully made and forever mine.

My Bucket List

1.Invite A less fortunate over for Thanksgiving Dinner

2. Take A photography Class

3.Convince Nick to get A pedicure

4.Get A full body massage

5.Let my light shine more

6.Have A romantic dinner on A yacht with NIck

XX 7.Watch A sunset with Nick

XX 8.Say sorry to people that I have hurt

XX 9.Stop worrying so much and just LIVE LIFE

10.Read the Bible all the way through

XX 11.Act my age

12.Take my brother and sister on A shopping spree

13.Own all of the Nicholas Sparks books

14.Go to Hollywood California

15.Have A picnic in the park

XX16.Save lots of money for A new house

17.Hope that someone throws me A suprise birthday party with all the ones that I love there

XX 18.Buy A hammock

19.Get all my wedding pictures into A photo album

20.Get Nick to go on A cruise with me

21.Take A vacation with just my mom and I

22.Help build A house with Habitat for Hummanity

XX23.Learn to cook

24.Write A letter to my parents and tell them how I have ever felt about things in my life... JUST LET IT ALL OUT