Show ME the proof that there is any political nature to this illness other than paranoia. tamtam perpetuates the parnoia. Paranoia is not scientific.

showmeproof wrote: and how he came to know what he does, although those of you infected by this agent, most likely would not care for the answer.

WHAT does he know? He can put phrases together into techno babble and post inks to papers and articles regarding quorum sensing. Those links do not validate the techno babble, they just add more smoke to the smoke and mirrors act.

It is related to prototheca, and also note that it is affiliated with water? and those mute swans of which the DNR says is a nuisance.

Oh, that might be cyanobacteria? and the protist connection.

Investigation of this avian outbreak, the first of its kind, provides additional insight into the epidemiology of this enigmatic aetiologic agent, which has yet to be isolated and cultivated in vitro. The occurrence of rhinosporidiosis in swans supports an aquatic environment as the reservoir for R. seeberi, which is often associated with exposure to water.

DNA Sequencing Helps Researchers Become First to Prove Same Protozoan Affects Both Humans and Swans

History making find also discovers that swans show a spontaneous remission upon removal of cysts caused by the protozoan.

ORLANDO, Florida -- Six Florida researchers working with a Michigan State University associate professor and a medical mycologist from the Centers for Disease Control and Prevention in Atlanta, Georgia have become the first to prove that rhinosporidiosis in swans is the same protozoan affecting both humans and other animals.
This find is historically important. Rhinosporidiosis, once thought to be caused by a fungus is now proven to be a protozoan. This organism is found in moist, warm environments and is most prevalent in India, Sri Lanka and southeast Asia, although cases have occurred in Africa, Central and South America, Europe and
the United States. This protozoan has never been cultured and its natural habitat remained unknown. Rhinosporidium seeberi is a natural occurring microorganism that infects the mucus surfaces of humans and animals who come into contact with it. Rhinosporidiosis is a byproduct of the microorganism. It’s a non-contagious chronic infection that usually manifests itself in the form of slow-growing-tumor-like masses that affect the nasal passages or the eyes. Currently, surgical removal is the only available treatment.

Why were you banned from Lbusters? I have found your posts to be very informative......PM me if you would like to "talk". I'm so sorry that you have been hurt......I know that it is so hard to know who to trust!

Spread of the disease is via horizontal transmission, i.e., transmission from one person to another, either directly or by fomites or by ingestion of contaminated meat.

Diagnosis

In the past, diagnosis of prion disease was made through examination of brain biopsies taken from patients in advanced stages of the disease or, more commonly, after they had died. In January of 1999 it was found that the prion protein accumulated in the tonsils and could be detected by an immunofluorescence test on tonsilar biopsies. A second test was simultaneously developed which was based on a Western blot. Later that year a third test was developed that had the high sensitivity necessary to detect the prion protein in blood. This test is based on capillary electrophoresis with laser-induced fluorescence. It detects as little as 10-18 mole.

As a sufferer with this syndrome - I have only started to come to these websites and support forums in the past couple of months.

Even now - on this support forum site I see that research talk still goes on. There really is no 'support forums' as such in my eyes.

This is how I felt at Lymebusters - I felt I was being caught in the crossfire. It seemed to me there was an argument going on at a much higher level. I would post a message or response or even a question - but an important question - but sometimes the arrogance and research discussions still continued. It just didn't make any sense to me. I could not figure out who was who. There were certain people there that I thought I could trust, but they just ended up sending me emails with silly documents attached - supposed CIA documents and stuff on Morphborgs!!

To be quite honest - when you are as sick as I am you don't want to read this crap, it really scares me and sends me into paranoia. I have only suffered paranoia for about one month with this thing.

Sometimes I think to myself - I feel like an HIV victim.

Our Governments and Medical Researches are usually in preparedness for new diseases. Sometimes I think have the MRF tried to speed up the process of something that would eventually come to the forefront anyway.

I can not speak about the MRF really because my communication with them has only been phone and email. Without meeting people in person it is very hard to get a good picture of things. All I can say is that I have been told conflicting stories from MRF members and that leaves me confused. So yesterday I resigned as the Australian Represenative of the Foundation.

If the MRF is a sinking ship I wanted to jump off before my name was also dragged through the mud. I am lucky that I had time to stop my photo being put on the MRF website - I think that stress alone would have killed me out right.

I have decided to take no more antibiotics - these pills will kill me out right. I would just rather linger on for awhile and try to enjoy the life I have left.

Someone made reference to Lyme Disease in above post - well I can tell you I have had two negative Lyme tests, but my doc did a Lyme test through Phenolic testing which showed positive to Lyme. I have also developed scleroderma, but all my blood is clear???? If I could pick one bug or bacteria that we all know about I would choose Lyme. I have had every symptom of lyme my entire life and my skin feels like someone dropped a billion spirochete in there.

Hence to say I haven't had a decent set of blood tests done in months. I don't really want to go to another doctor, but I will wait for the documentary from the MRF to go to air on the 9th August. I don't hold much hope as to this giving us any answers.

It may help some of the researchers who frequent these websites and blog sites. I am off the research band wagon - I have done enough. I know what I have involves every bug under the sun and some kind of plant growing in me. Makes my body feel like a human bungy rope.

I am currently taking Prednisolone and Valtrex. I still feel very unwell. Headaches, head pressure, very weak, speech problems at times, walking difficulties, drop foot, severe short term memory loss, terrible mood swings, the full neurological component, seizures the lot.

My doc knows how bad I am, but in my logical mind if a person was displaying all of these things wouldn't some more tests be warranted or given a damn CAT scan or MRI scan? I am not a doctor, but have worked many years in a lot of hospitals and radiology sections etc. and my logical mind tells me that I need some new blood tests and maybe some scans.

I do not have the mental or physical engery to see another doctor. I will give this some thought of course.

Sometimes I think to myself - our doctors and medical community have seen our type of infections before ok - and they have probably seen them in HIV people in the past. Why is it - that they insist on trying their protocol and maybe someone elses protocol that they found on the internet. An innocent person like me gets treated like a lab rat!

I do not hold out much hope for a cure for myself. I just take one day at a time now. Very difficult to find peace though - I can't sleep properly and nothing really seems to help.

My theory on this - Lyme disease with a billion other nasties thrown in - that do not show up in any of our current blood tests. I can not think of another disease that could do this to my brain - and especially living this disease in reverse - I keep telling people - if this thing keeps going in reverse I will be dead or reborn!!!

The one thing that this disease has shown me is that there is a giant hole in the system for reporting and the discovery of new and emerging diseases that need to be addressed by our political leaders.

Each person should contact their senator and tell them to contact their secretary of health and human services so that all the states in teh USA can be aware of this problem, not the disease, but the hole in the system that needs to be addressed and fixed very, very soon.

I have contacted Senator Allen of Vriginia and he has contacted the Secretary of Health and Human Services for the Commonwealth.

Please do the same and e-mail your letter to me so that I can show that all the states have made them aware of this problem.

Lets not be apathetic. Also be aware of this German web site completed by a friend who has this.