This project has been developing the IAM portal allows TYA
patients to access a specific holistic self-assessment tool through
which they can explore and document their needs, and obtain
information and support to help with self-management. The
Portal will soon be accessible both via a website and as an app,
and we have been working with young people and professionals to
develop the content, look and feel of these. The Help! Website can
be accessed separately. It includes information from many different
sources, including video clips of other young people talking about
how they managed the concerns they experienced.

Radiotherapy information

You may be told you need to have radiotherapy as part of your
treatment. This can feel quite scary and TYA team have been
developing ways to be on hand to support you before, during and
after the radiotherapy. There is a dedicated Teenage and Young
Adult radiographer who can show you around the radiotherapy
department and let you know what to expect. There are things that
can help you feel more relaxed during the treatment such as
listening to your favourite music. If you would like more
information, a chat or some young person friendly leaflets then
please speak to the youth support coordinator or any member of the
team.

ACE project 'Too young to get
cancer'

Many young people tell us they feel the recognition they had
cancer took too long. The aim of the UHBristol ACE project "Too
Young to Get Cancer?" is to map the diagnostic pathway from symptom
presentation to time of starting treatment for all patients
referred over a 12 month period to the TYA service in Bristol from
across South West England. In order to do this we have been
extracting information from both GP and hospital records. We will
use this information to see if there are ways in which the time
taken to reach a diagnosis can be improved for future TYA patients.

Want to be involved?

The team want to make sure that any service development really
reflects what people want. This means the team are fully
committed to involving patients, families, carers and professionals
at every step. If you have any ideas for future projects - lets us
know. If you want to know more about how we work with young people
in our projects