Weʼve raised £22,956 to give Freddy a fighting chance at life with life saving heart surgery

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Freddy is a cheeky 4 year old boy. However, he has a extremely rare and life threatening heart condition. At 4 months old Freddy had an out of hospital cardiac arrest. We were told that there was only a 6-8% chance that he would survive. If he did survive we were told he wouldn't be the child we knew.

But miracles happen and Freddy survived. Due to the amazing work of the paramedics and incredible CPR by our neighbour, Freddy is now 4, but still battling this horrid condition.

Freddy was diagnosed with a cardiac tumour- a Fibroma in his left ventricle. The tumour is 5 cm by 3.5cm. It makes up much of his heart wall and fills 2/3rds of his ventricle.

The tumour causes dangerous heart arrhythmias which make Freddys heart beat in excess of 200 beats per minute and can lead to sudden death by him going into cardiac arrest.

To date Freddys has had 3 heart surgeries and has a defibrillator implanted in his tummy.

There is no cardiac centre in the UK that have any experience in carrying out this surgery.

Cardiac tumours occur in only 0.2 percent of the population. They are completely random and is not a genetic condition. Most children present within the first year of life and unfortunately 33 percent do not survive.

Boston Children's Hospital in the US is the leading centre in the world. From 1990 to date they have managed 27 cases. Since 2013 they have successfully removed 7 fibromas in children whose life threatening rhythms have disappeared once the tumour has been removed.

Freddys arrhythmia burden is controlled by medication. However due to serious side effects of the medication this is not a long term solution.

Freddy now needs to go to Boston to have life saving treatment to remove the tumour. Having a poorly child changes you as a person. You do not dare to look into the future and you live in the moment. You face the fragility of life everyday

So we now need your help to perform another miracle ❤❤❤

Updates

22

10 months ago

Cathryn Vallender

10 months ago

As our page comes to a close we want to say Thankyou to every miracle maker for sharing, donating and supporting us on our journey. Freddys chance at life is due to a cast of 1000's. Incredible human beings, Thankyou xx

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1 year ago

Cathryn Vallender

1 year ago

Freddy had clinic yesterday and was such a grown up boy 💙💙 we have made the decision with Freddys consultant here to travel to Boston in January. I will let you all know as soon as a date is confirmed. Thankyou for your continued support and prayers on our journey #freddysfightforlife #miraclemakers

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1 year ago

Cathryn Vallender

1 year ago

We have had an amazing fundraising weekend fundraising with Fred. Thankyou to everyone that has been part of or supported us, you are all Miracle makers and amazing humans ❤❤❤ we are now at a huge £52,800. Let's keep pushing to that £60,000

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1 year ago

Cathryn Vallender started crowdfunding

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Page last updated on: 10/9/20175:58 PM

Supporters

796

Miranda

Oct 9, 2017

Freddy's courage is inspiring - I do hope that he can have this life-saving operation very soon.

£100.00

Anonymous

Oct 8, 2017

With love, luck and best wishes from The Lighthouse Bristol Team A&S xxx

£385.00

Sad Badger

Oct 6, 2017

As my badger family contributes towards stopping of the cull of our relatives in the West of the country, I think that we should also support plight of this little human creature

£20.00

John McDonald

Oct 5, 2017

Best wishes to you and Freddy.

£50.00

Anonymous

Oct 5, 2017

£30.00

Grace & Jack

Oct 5, 2017

We asked our wedding guests to donate their change from the bar at our wedding reception, 15/09/2017. Sorry its not much, most people were paying on card. Good luck Freddy! :)