Tag: Hemophilia

One gay man is uncovering the failures in hemophilia treatment Story by: Bobby Hristova | Illustration by: Jordan Mak Mark Ward has been fighting for his life since he was born. At three-months-old, doctors diagnosed him with severe hemophilia. At 14, he learned he was HIV positive. Then, Ward found out he had hepatitis C. Now, 49-years-old, the number of […]

HIV / AIDS News August Hunky Broadway star Hernando Umana: “I am a proud gay man living with HIV” It had been drilled in my head that gay people get HIV because of wrong doings and they deservingly die from it. Well I’m here to shut that sh*t down. There is NOTHING wrong with me and I am healthier […]

HAEMOPHILIA NEWS The purpose of this page is to provide news articles related to Haemophilia. The information contained on this page includes various items, for example: Developments of new clotting products, vaccination updates and haemophilia industry business along with other areas of this specialist field of medicine. Click on each link to read the News article: August Spark Therapeutics […]

On the eve of meeting with Sir Brian Langstaff, chair of the public inquiry into the contaminated blood scandal, I am proud to share my interview with Gretchen Hammond. A LONE VOICE FOR LGBTQ HEMOPHILIACS IGNORED BY ADVOCACY ORGANIZATIONS, LGBTQ HEMOPHILIACS HAVE AT LEAST ONE RESOURCE Mark Ward, Founder of Haemosexual & Haemosexual Australia Even as the LGBTQ community grows […]

www.facebook.com/groups/2219696857/ Taken from Facebook –The Ryan White Story – EVERYONE needs to know Ryan White was diagnosed with AIDS at age 13 and gained international notoriety fighting for his right to attend school. In the process, he opened the hearts and minds of millions of people. During the time between his diagnosis in 1984 and his death in 1990, Ryan spoke out often and eloquently about […]

We are looking to increase our programs and services for men with hemophilia 50 and over. If you know someone who fits that criteria, we hope you’ll pass this survey along so we can find out what is needed! NHF is conducting a survey that will help us better support our community members who are 50 years old or […]

UT Austin Engineers Develop First-Ever Capsule to Treat Hemophilia Bloggerr December 28, 2016 In center, Sarena Horava, the study’s lead author and a recent Ph.D. graduate from the Cockrell School of Engineering, helping high school students. Cockrell School of Engineering AUSTIN, Texas — In the near future, hemophiliacs could be able to treat their disease by simply swallowing a capsule. Thanks to a […]

ABOUT THE HIV STORY PROJECT Founded in 2009, The HIV Story Project is a San Francisco based non-profit organization focused on bridging HIV/AIDS with film, media and storytelling to fight the spread of the pandemic and the global stigma associated with it. We create our own film and media projects in addition to offering production services and digital media consultation […]

Christine Herr, Data and Research Coordinator The Report on the Annual Global Survey 2015 is now available in print and online at www.wfh.org/globalsurvey. The report includes selected demographic and treatment-related data on people throughout the world with hemophilia (PWH), von Willebrand disease (VWD), other rare factor deficiencies, and inherited platelet disorders. The Report on the Annual Global Survey 2015 is […]

Drugs that can cause bleeding People with bleeding disorders should avoid aspirin and other drugs that can cause bleeding. This list of drugs that can cause bleeding does not include drugs that have to be given as injections or intravenous infusions. The generic or “chemical” names are given since the brand names or marketing names differ between countries. While every […]

“Time” they say “waits for no man”. So, whilst the seasons change and we have dark cold nights to look forward to, spring has sprung across the southern hemisphere. With the help of a very dear friend, we hope to bring you some rays of sunshine to brighten the most darkest of nights. I am truly honoured to announce […]