Here is a link to the CFIDS Association of America - follow the links for advocacy and let YOUR voice be heard.

It take about 5 minutes to send an email to some of the "powers that be".

http://capwiz.com/cfids/home/

Also, I am encouraged by the research funding that has been increased since 2006. It really is getting better. It just takes time to see the results because the studies are lengthy. (They should have started these 15 years ago but they didn't.)

Here is one of my favorite sites for research. Cort Johnson does a great job. There are lots of research studies right now in the making - so there is hope. This include brain research, immune system, some really exciting stuff.

http://phoenix-cfs.org/TrtIntro.htm

The conference links are excellent and there are research studies in various countries and people are starting to work together. Now we have to make our voices heard.