Invisible Illness

Monday, June 15, 2009

Think People And Puppies And What Do You Get?

People Puppy Chow!! Yummy!! My group is working on recipes swaps and this is one of mine. I have a real problem with liking anything I make, it makes my husband crazy, but I have to admit I am liking this recipe page :) If you can't read the directions and want this recipe, email me or leave me a message here. I will happy to send it over to you!

I am going to try to scrap through out the day..the boys and I were planning a hike today but we have been rained out :( It is raining like mad - almost two inches has fallen in less than 4 hours. Nearby rivers and creeks are overflowing already. We are still due more before it will move out of the area.

Rain means pain for me - I am trying to get some scrapping done, but I don't know how much will actually get accomplished when I feel like this. The pressure in my face is horrible and the pain is starting to get really bad. It is only a little after noon, so I know I am in for a pain-filled day. I need some dry weather soon!!

1 comment:

Art Hill, St Louis Art Museum 911 Remembrence one flag for each person who died that day

Help us fight Breat Cancer!

Learn A Little About My Condition

TN (Trigeminal Neuralgia) Description / Definition TN (Trigeminal Neuralgia) is a nerve disorder of unknown origin that causes sudden shock-like facial pains, typically near the nose, lips, eyes or ears. It is said to be the most excruciatingly painful human condition in the world.The disorder, also called tic douloureaux, is named for the three-part (trigeminal) nerve that supplies sensations to all parts of the face.However, because the trigeminal nerve is involved does not establish the diagnosis as being TN.The earliest description of trigeminal neuralgia can be inferred by Galen who was born in AD 81.TN (Trigeminal Neuralgia) is a disorder of the fifth cranial (trigeminal) nerve that causes episodes of intense, stabbing, electric shock-like pain in the areas of the face where the branches of the nerve are distributed - lips, eyes, nose, scalp, forehead, upper jaw, and lower jaw.A less common form of the disorder called "Atypical Trigeminal Neuralgia" may cause less intense, constant, dull burning or aching pain, sometimes with occasional electric shock-like stabs.Both forms of the disorder most often affect one side of the face, but some patients experience pain at different times on both sides. Onset of symptoms occurs most often after age 50, but cases are known in children and even infants. Something as simple and routine as brushing the teeth, putting on makeup or even a slight breeze can trigger an attack, resulting in sheer agony for the individual.Trigeminal neuralgia (TN) is not fatal, but it is universally considered to be the most painful affliction known to medical practice. By many, it's called the "suicide disease."Initial treatment of TN is usually by means of anti-convulsant drugs, such as Tegretol or Neurontin. Some anti-depressant drugs also have significant pain relieving effects. Should medication be ineffective or if it produces undesirable side effects, neurosurgical procedures are available to relieve pressure on the nerve or to reduce nerve sensitivity. Some patients report having reduced or relieved pain by means of alternative medical therapies such as acupuncture, chiropractic adjustment, self-hypnosis or meditation.Trigeminal Neuralgia is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that TN, or a subtype of TN, affects less than 200,000 people in the US population.It is estimated that 1 in 15,000 people suffer from TN, although those numbers may be significantly higher due to frequent misdiagnosis. 1 in 5,000 are thought to suffer from some type of facial pain.The exact cause of TN is not fully understood

About Me

I am a 30-something mom of three incredible boys. I have been diagnosed with the chronic illness called Trigeminal Neuralgia, or TN. There is no cure and extreme pain is a part of every single day of my life. If you are interested in learning more about this condition just google it. The love and support of my family, as well as scrapbooking, is what gets me through each day.