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Tuesday, March 16, 2010

I am so sorry for such a late update, things have been crazy around trying to get settled back in at home after surgery and now we both sick on top of that. We have been home for a little over a week now. Aleah is on the mend, she is now on two antibiotics one for her ear and one for her respiratory infection. We saw the surgeon today for her post op check up and her tummy is looking good and healing good. She is our strong little girl and we so happy she is recovered from her surgery. We are hoping and praying this is the answer to keep the seizures away!! Keep praying for that! Here are some cute pics of our little girl enjoy and xoxoxoxo!

Sunday, March 7, 2010

First thank the Lord above for always bringing my little girl through so much, and for always hearing our prayers. Aleah is feeling much better today, she has been awake today without crying in pain and that makes me very happy. We are probably going to get to go home tomorrow. They started her on some clear liquids yesterday and started her back on her pediasure to make sure she could tolerate it, so we are looking forward to getting back home. Thank you for all the love and support from all of our friends and family :)

Friday, March 5, 2010

Well sorry I havent updated since surgery. The surgery went well praise God. It was a rough the first night out from surgery, Aleah was up every hour on the hour. She is in a lot of pain, this is post op day two, so we are hopeful that with each day her pain will be less and less. Its awful to watch her be in so much pain, my heart aches for her. She is getting morphine, until tomorrow and then they will give her something a little less potent. Keep the prayers coming, its hard for all of us but its the toughest for her shes the one thats hurting. I will update as soon as I can.

Tuesday, March 2, 2010

I don't mean to spring this on everyone but it was pretty much sprung on me too. Aleah had two test done about a week ago because her GI doctor suspected she may be having some refluxing issues. Both tests show is having reflux all the way up into her neck or upper esophagus. I have a theory about this. I believe this is what is causing her seizures. I feel that she refluxes up and it blocks off her airway so she cant breathe and then causes a seizure. All of the seizures but two of them have happened late in the night while she is asleep. The body's muscles relax and so does the muscle at the top of the stomach that keeps the contents from the stomach from coming back up, this is why most all of her seizure have happened late in the night while she is sleeping. So now they want to do what is called a fundoplication. For a full explanation of the surgery and how its done search nissen fundoplication on wikipeida. It is a procedure where they stitch the top of the stomach around the bottom of the esophagus to try and tighten the muscle at the top of the stomach to keep the contents from the stomach from refluxing back up. She will be having this surgery on Thursday March the 4Th at 9:50am. Please say special prayers for her, she will have to have a three inch incision and they may have to move her g-tube to a different place in her stomach, if it gets in the way during surgery. Please pray for no complications, that her g-tube will not have to be moved and that her pain is well managed. I will update I soon as I can and let everyone know how her surgery went, thanks in advance for all the prayers sent up for our little girl. It means so much!!! xoxoxo Here are some cute pics of our precious Aleah from the past few weeks.

My name is Ashley I am the mother to a beautiful little girl named Aleah. Aleah was born with life threatening birth defects, we never expected to have her here with us and here she is bringing joy to our lives everytime we look at her. I am so thankful to be her mommy and although life can be very hard with a sick child, I wouldnt trade being her mommy for anything in this world!!