"Once we lost my mom (to CJD), we did some research, and we were stunned. After realizing how critical fundraising is for CJD, we knew we had to take part." — Charlotte

Charlotte and her family have hosted several fundraisers in Massachusetts in memory of their beloved Amale, including a pop-up shopping benefit, a fundraiser dinner and the annual Hope for CJD charity 5K walk.

Left: Family members gather for the Hope for CJD Walk in 2018

To learn more and watch a video about Charlotte's story, click here or on the PLAY button below.