Monthly Archives: April 2013

So we are on the road, to go to Virginia Beach. We are going to be hunting for homes. A house that is closer to my support system. Although I hate the idea of leaving Washington D.C., I look forward to moving back. I feel homesick. I need more familiar faces around. I dont think …Read More →

Results So my daughter definitely has Bartonella (a coinfection of Lyme disease) and some secondary infections of Lyme disease. No conclusive positive Lyme yet. Unfortunately, a negative Lyme test results does not mean she does not have Lyme disease. Tests for Lyme disease is not fully accurate and tends to give false negatives. The sad reality …Read More →

Birthday Preparation Quote from my 7 year old: I want to throw a birthday party for mommy and I want it to be perfect. She always makes sure our birthday parties are perfect, so I want hers to be perfect. This is how my sister, who is visiting from Turkey, started helping (help is an …Read More →

Couple of Facts About Lyme Lyme disease is a seriously complex multi-system inflammatory disease caused by a bacteria called Borrelia burgdorferi (Bb). This highly sophisticated bacteria is transmitted through a tick bite. Lyme disease usually comes with coinfections. It takes years to treat along with tons of medication and money. Just the money spent on …Read More →

Frustration Watching my daughter frustrated, because she has these nonstop headaches, stomach aches, chest pain, ringing in the ear and fatigue. She feels everybody around her ignores her problem. When she mentions her problem to an adult, she expects him/her to provide her a solution. Instead what she hears is, either “drink some water” or “you will …Read More →

I woke up with some energy this morning. I almost feel normal at the moment. I know it is temporary but i am still happy. I almost forgot what is like not having herxheimer reaction. I can’t complain right now. Funny thing, I just want to clean, do laundry and finish household chores. You’d think …Read More →

My life in seasons If my life was described in seasons, I can say I feel stuck in the middle of the winter right now. There is a snow storm and my only shelter is a tent. I am cold, wet, uncomfortable and distressed. I don’t know how long this storm will last. I am …Read More →