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Thursday, July 30, 2009

Brighton Ski Lodge trip and KUTV interview

We have had a great opportunity in the past to have been invited by friends to go to their family's cabin that has a spring fed pool. Our kids LOVE it and we really wanted to be able to find a place kind of like that that we can plan to go to each year and let the kids just have a relaxing time. We decided on Brighton Lodge. It has family history there for us so it also holds some sentimental value. We went over the holiday this last weekend (after our little hospital visit) and thoroughly enjoyed ourselves. 3 and 9 just wanted to live in the hot tub there, they were little fish. It was really fun too, because there was a BBQ and picnic tables near the hot tub so we swam and BBQ'd steaks and veggie cabobs. It was a hit and the kids are excited for next year's trip! 9 sad he wants to stay ten nights next time...

We also took a walk around the lake that is up there. We thought the kids would really enjoy it, but for one reason or other 9 was dismayed and just wanted to go home (the lodge) but we finally made it. You will see some pictures of his "excitement."

All in all, we had an awesome time up there. It was even cooler because we were the only people there, the manager of the place didn't even stay there! So we basically ran the place as if it were our own cabin and got to leave without having to scrub the toilets. We stayed up late watching videos and playing games while drinking some really great hot chocolate! It was actually kinda cold that night. We had fun so enjoy the pictures. Oh, and don't get to worried of the pics of my in my swimsuit, I know my legs have not seen the sun but, I was excited to show off my belly and my swimsuit isn't going to cover it much longer. I was 21 weeks then and I am 22 weeks now and I have grown quite a bit!

This was right outside the door of our room—it was gorgeous

Here's our walk around the lake...

The little ones gave up walking—fragile x low muscle tone doesn't help this out any

9 is toast...

...really toast...

walking back to the lodge after getting expensive refreshment at the local cafe/store—I am a mom with a mission: get my kids back to the hot tub!

Ya, I know, my legs blend in with the white rocks behind—now I've said it so you don't have to...

Beautiful Brighton Canyon

Today was a very exciting day at our house and for the Fragile X community. KUTV, Channel 2 News came to do a story on us today for Fragile X Syndrome. It will be featured on the Parent2Parent. It won't air till the week after next, she will email me to tell me the air date and time—I will post it so you can all view it.

I was so nervous, and then you stick a mic on me and bright light camera in my face — it adds to the whole holy-crap-I-am-going-to-be-on-TV-do-I-have-anything-in-my-teeth scenario. But they were very nice and I think I answered the questions pretty thoroughly. I will tell you the truth though, you can't cover everything from your journey to your children's diagnoses, to what Fragile X Syndrome is, to how it affects your family, to who are the carriers and how is it passed on in only a 10 minute interview which then gets cut to 1 1/2 minutes on air. I think, though, that it went well. The cameraman had many questions after the interview so I think it was interesting enough—hopefully the viewers will also want answers and check out the fragilex.org website.

So anyway, the funniest part of the whole interview was that 9 wanted so badly to be part of the interview but his anxieties just couldn't quite handle it so he would stand behind me or walk behind me with a blanket over his head. Ha! I think the interviewer was getting a chuckle out of the fact that I just kept going even though there my blanketed child continued to wander behind me. I think she came to realize it was the norm. We have been laughing about it all day. They got some great shots of the kids and I am excited to see how it is all pieced together in the end.

They were so nice and genuine and I actually really enjoyed having them in our home. Junior got a picture of the three of us at the end of the interview and filming.