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IMPORTANT! IMPORTANT! IMPORTANT!
The information in this site is provided completely free of charge for educational purposes and should not be used for self diagnosis and treatment. In the case of a health problem, please contact your doctor!
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Personal data are all kinds of information concerning an individual, which reveals his/her physical, psychological, mental, family, economic, cultural or public identity.

The Institute for Rare Diseases (IRD) is obliged and engaged with the implementation of all necessary technical and organizational means, in order to protect your personal data from unauthorized access and use.

You have the right to send a written petition to IRD, by which you can:

ask for a confirmation for the existing personal data, concerning you

update or change your data

clarify the conformity with the law of the storage and processing of your personal data