tag:blogger.com,1999:blog-606637689904713685.post3612542542387590673..comments2019-08-01T13:17:59.556-07:00Comments on Death of a Pancreas: What this post isn't aboutJoannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-606637689904713685.post-60427863247095280182011-04-21T20:29:31.651-07:002011-04-21T20:29:31.651-07:00First of all...
SO PROUD OF YOUR SWEET ELISE! (a...First of all...<br /><br />SO PROUD OF YOUR SWEET ELISE! (and her awesome Mommy, btw)<br /><br />Now...<br /><br />I love this post, but have to admit that I&#39;m SO SORRY it&#39;s hailing on your sunshine right now :(<br /><br />Keep us updated...going to check out THE APPOINTMENT in a few minutes!Wendyhttps://www.blogger.com/profile/16704298016041843194noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-66582737731791002012011-04-21T14:30:55.360-07:002011-04-21T14:30:55.360-07:00I think you are most awesome, jo, and I get it. So...I think you are most awesome, jo, and I get it. So much on the plate sometimes. I don&#39;t know about you, but I&#39;m ready for a diet or an overflowing plate-full of chocolate cake! You&#39;re hanging in there great! Love ya!Amy Ledererhttps://www.blogger.com/profile/02234638502645023830noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-20748624128420976272011-04-21T11:23:19.703-07:002011-04-21T11:23:19.703-07:00Hey Joanne,
My computer is having some issues and...Hey Joanne, <br />My computer is having some issues and I can&#39;t email you through your blog, but my email is avolcansek@yahoo.com.<br />Thanks!Amandahttps://www.blogger.com/profile/10314630344481444551noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-35849403654939817212011-04-21T06:56:57.690-07:002011-04-21T06:56:57.690-07:00Let it out sister, let it out.
For me venting is ...Let it out sister, let it out.<br /><br />For me venting is a release that allows me to let some things go.<br /><br />When it rains, it pours...and hails!<br /><br />But what a great report about Elise and an awesome Dexcom graph. Hooray!<br /><br />(You are featured again today in my post from the archives.)Leighannhttp://www.d-mom.comnoreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-55053313900376121532011-04-21T04:13:06.936-07:002011-04-21T04:13:06.936-07:00There is a school of thought that links sensory is...There is a school of thought that links sensory issues to feeding issues. And I know that there are some speechies who work on this in older children here in Brisbane. Not sure about diagnosis or if/how it affects infants.Melissahttps://www.blogger.com/profile/17168423954416466539noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-26410592892573401472011-04-20T17:53:41.990-07:002011-04-20T17:53:41.990-07:00Oh Jo, you dot sound crazy, you sound like a stres...Oh Jo, you dot sound crazy, you sound like a stressed mommy of two, so welcome to the ole club! Sending love from PA and as a teacher of the Deaf and multiply involved and challenged children, there isn&#39;t a SLP who should be diagnosing SI disorders. That&#39;s done by an OT as Amanda stated. And we all have some SI sensitivities to some extent, it&#39;s when they interfere with living a life that it becomes a problem. Get thee to another OT for a consult, many OTs who are worth their weight in gold can help. Sending hugs.Pennyhttps://www.blogger.com/profile/11137611120689810820noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-80873754998672366732011-04-20T17:45:38.819-07:002011-04-20T17:45:38.819-07:00Your posts sound more like a mother of two very yo...Your posts sound more like a mother of two very young children ( even normal for one just dealing with typical sleep deprivation and baby brain drain, much less dealing with the monster D). I would be on your side regarding the diagnoses of Matthias. I fought the advice of my own mother to have my oldest son tested for ADHD at three and now he is a fine, young, man who reads Plato, listens to Bach and animates amazing work for hours on end.....no ADHD for sure. <br />Hang in there....it will get better, I promise. It might just be a little slower than you might like, but it does get better.Shannonhttps://www.blogger.com/profile/14106911497739777113noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-45489111433669894832011-04-20T16:58:07.129-07:002011-04-20T16:58:07.129-07:00I think we are all going off the deep end to some ...I think we are all going off the deep end to some degree...at least I know I am (or feel like I am) on any given day :)<br /><br />Rant away my dear, you do it with such grace and humor :)<br /><br />I&#39;m so glad to hear that Elise is doing so well!conniehttps://www.blogger.com/profile/18365385305270234889noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-13749978291551050302011-04-20T16:50:02.618-07:002011-04-20T16:50:02.618-07:00ugh about sensory integration disorder - we all ha...ugh about sensory integration disorder - we all have it! Really, as a &quot;retired&quot; elementary teacher I couldn&#39;t have come up with a more silly diagnosis for children that are suppose to be bubbly, unique, fun, active, learning and social...double ugh to that dx, and if I were in TX I&#39;d drive you there myself to deliver your special response!<br />As for the reglan, sorry it&#39;s been such hell for you - I had to take it when pregnant with Ethan because I couldn&#39;t eat more than a bite of food every day and it was suppose to help with appetite. After two weeks of feeling internally tortured both physically and mentally I stopped it and never ever listened when it was suggested. <br />I have bags of frozen milk in my freezer, no joke, if we were closer they&#39;d be yours in a minute - that is if you&#39;re not disgusted by the idea of swapping human milk, which I don&#39;t know why people are since they drink cows milk! <br />But...on to the tornado warning - hope all is okay and your car didn&#39;t get too dinged by the hail. What a hail I mean hell of a day. <br />Hope today is better :)Sarahhttps://www.blogger.com/profile/03210820513382353417noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-67881167474103878952011-04-20T16:43:13.734-07:002011-04-20T16:43:13.734-07:00No need to explain the &quot;rants&quot;. I get i...No need to explain the &quot;rants&quot;. I get it. I get you. <br /><br />Love you and hang tough...and I get the not wanting any other bull crap added to your pile of bull crap. That piece of crap needs to be piled on somebody else&#39;s pile of bull shit. IMHO.<br /><br />Love you.Reynahttps://www.blogger.com/profile/00895126112651188056noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-60059397748357571062011-04-20T14:39:20.281-07:002011-04-20T14:39:20.281-07:00sensory integration disorder?????? uh, really? not...sensory integration disorder?????? uh, really? not sure about that. <br />I&#39;m so glad you got a great report about Elise but I&#39;m not surprised. She is a treasure and you are too. <br />I hate that you got caught in the hail and your meds caused an awful rash! uhhhhhhhhghhh! Jo.....! Calgon take you away!<br />I&#39;m glad you have this place to vent...and all of us who love your thoughts are here!Liz Sobolikhttps://www.blogger.com/profile/15065218761667367477noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-24442167627631319652011-04-20T13:22:25.638-07:002011-04-20T13:22:25.638-07:00@ Amanda - Thanks for your comment. If you wouldn...@ Amanda - Thanks for your comment. If you wouldn&#39;t mind, I have a few questions for you. Could you email me using the contact link through my blog?<br /><br />Thanks!Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-16341228276148773082011-04-20T12:52:07.030-07:002011-04-20T12:52:07.030-07:00I don&#39;t think there&#39;s any room left in the...I don&#39;t think there&#39;s any room left in the deep end, so you can&#39;t possible fall off into it!! ;)<br />I am totally impressed that the speech therapist isn&#39;t in a room in said hospital. You would have totally been able to pull an insanity plea with all the shit that&#39;s been hitting your fan lately!!<br />I sincerely hope your ass, um rash, is better soon.<br />Totally rejoicing with you about Elise&#39;s good report. It&#39;s always wonderful to hear that our kids are doing not just well but fantastically!<br />Hugs!!!mysweetbeanandherpod.comhttps://www.blogger.com/profile/05726979027850619807noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-4303544588655046032011-04-20T12:49:33.071-07:002011-04-20T12:49:33.071-07:00Yeah, I&#39;m with Lora. Sensory integration shoul...Yeah, I&#39;m with Lora. Sensory integration should not be dx by a speech therapist. Occupational therapist, yes. They typically specialize in that.<br /><br />Try not to worry about her saying that. I worked in Early Intervention (birth-3) for years and that term gets thrown around kind of loosely. It can just mean that they have some sensory issues. The thing is that when you look online they typically describe the most severe textbook cases and not many children fall into that category.<br /><br />Everybody has some kind of sensory preferences or likes/dislikes...not liking lotion on skin or tags in shirts or mushy textures. SI is just an amplification of those things. Even if he were to really have a serious case of it, an occupational therapist can help you work through those things and come up with coping plans for them.<br /><br />You have had some seriously crappy goings on. I am so sorry! I hope that things mellow out for you and soon.Amandahttps://www.blogger.com/profile/10314630344481444551noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-33589798193351789262011-04-20T11:16:36.824-07:002011-04-20T11:16:36.824-07:00If YOUR going off the deep end... I am sure to be ...If YOUR going off the deep end... I am sure to be there jumping with you. I think your funny!! Does that count?<br /><br />I didn&#39;t know a speech therapist could dx a sensory disorder(??)... I would personally leave that up to a neurologist to decide. But I am a little bitchy like that :)<br /><br />If you slap her... get it on tape- okay? I wanna see!!<br />OR you could make a video of you slapping her... thats almost like the real thing.Lorahttps://www.blogger.com/profile/07192247387107228743noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-57032036751784658862011-04-20T10:50:57.898-07:002011-04-20T10:50:57.898-07:00First of all, I need to give a shout out to Amy&#3...First of all, I need to give a shout out to Amy&#39;s post above me and her abilities to &quot;spell Canadian&quot;...LOLOL!! LOVE IT! Secondly, I agree...I am glad you are able to post on here to get those things off your chest. I was actually thinking about ya the other day and starting to become a little worried because I hadn&#39;t seen a new post from you in a while. So, please continue to vent!! :o) Lastly, that is AWESOME about Elise at school! What a fabulous girl you have there!!sky0138https://www.blogger.com/profile/02085600646732450220noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-12736471841683581882011-04-20T10:46:40.268-07:002011-04-20T10:46:40.268-07:00How many of us write our blogs when we&#39;re feel...How many of us write our blogs when we&#39;re feeling like we&#39;re going off the deep-end? Seriously, that&#39;s what blogs are for, isn&#39;t it? So we can write it all down and bring ourselves back to the shallow end where we can cope with everything for a little bit longer? Personally, I think you sound a whole lot more sane than I do. The DOC can handle anything you want to bring!<br /><br />Elise sounds fantastic! Sure you don&#39;t want to consider moving back towards Canada a little bit? You could come be our neighbor!Cindyhttps://www.blogger.com/profile/05515030663618274693noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-45705709121583196542011-04-20T10:22:35.576-07:002011-04-20T10:22:35.576-07:00No, your posts are usually informnative and humoro...No, your posts are usually informnative and humorous. After a SOLID MONTH from hell, you are certainly entitled to vent. Hope spring comes soon, literally and figuratively. Glad to hear things are going so well with Elise in school and on the D front. That&#39;s at least a ray of sunshine for you right there. Hope you are feeling better soon and catching up on your sleep whenever possible.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-22032204263545406262011-04-20T10:11:15.074-07:002011-04-20T10:11:15.074-07:00Then I will not comment abuot any of the not-so-fa...Then I will not comment abuot any of the not-so-fabulous happenings! Except to say your perserverance with breastfeeding is admirable to the Nth degree. And, I won&#39;t comment about Dr. Quack-a-Knack. Except to say he sounds like a brazil nut ;)<br /><br />Here&#39;s the rub . . if you were NOT coming here to write about your frustrations we would all KNOW you had gone off teh deep end and needed rescue. <br /><br />As far as the humour (see, I can spell Canadian, too) it could use some impovement. Like including fairies and monsters and flying cows. But that&#39;s just my humble opinion ;)<br /><br />Ah, heck. You know I love how you write, my friend! Keep it coming!!! We can handle it!!! Really!!!!! (need less coffee)Amyhttps://www.blogger.com/profile/02826248976364694184noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-9777796846890012542011-04-20T10:06:33.074-07:002011-04-20T10:06:33.074-07:00You do NOT sound as though you&#39;re going off th...You do NOT sound as though you&#39;re going off the deep end! Anybody going through this stuff would be going bonkers! You sound normal to me!!!! You sound like an awesome mother to me!!!! I totally get your humor, and as your friend, I like reading your posts and knowing what&#39;s going on with you and your sweet kids.<br /><br />Be proud of Elise! She&#39;s a special girl! I suspect the future holds many more glowing reports like that! :)<br /><br />That IS a pretty CGM picture indeed!Heidi / D-Taleshttps://www.blogger.com/profile/16203534776909805264noreply@blogger.com