Search form

Caregiving USA

WHO CAN PARTICIPATE?

be at least 18 years of age;

be able to read, write, and understand English;

and care for a child (under age 18 years) with Down syndrome or muscular dystrophy

WHY WE NEED YOU

In order for children with Down syndrome and muscular dystrophy to thrive, caregivers also need support. To find out what support is needed we are creating a new measure that will help society understand the impact of providing care for a child with medical conditions on the lives of caregivers. We want to learn about your experiences with caring for a child age younger than 18 years by responding to questions about both the challenges and benefits of caregiving. With this information, communities can provide better support for caregivers and find out what works well.

WHAT’S INVOLVED?

We need volunteers to complete one survey, which will take about 30 minutes to finish. You can take the survey on the computer or choose to respond on paper (we can only mail surveys to addresses in the USA).

WILL I BE COMPENSATED FOR MY PARTICIPATION?

Eligible participants may receive $20 for completing the survey. You may be invited to complete the survey without payment if we have met certain enrollment targets. Unfortunately we are unable to send payments outside the United States.