I ordered a 1000x USB microscope recently, not sure how much I can actually see with it, but should be able to do at least some simple tests.

That's interesting - since the doctors didn't manage to find the cause, you need to become your own doctor to find out. EDIT: which reminds me of a Chinese quote which goes like this: "The only way to be sure that a work will be done, is to do it yourself"

Proper diagnosis is surely missing.. someone needs to go to a handful of doctors before even thinking taking an action/therapy. let alone surgery.

This situation will become better when science evolves - right now there is so much room for subjective approaches and experimental stages.But human body is a mystery - the perfect factory - no wonder why our mortal minds have difficulty explaining the miracle of creation. There are so many parameters, that a fully capable understanding system is hard to be developed. e.g.parameters like from the weather (place were someone lives) to his personal thinking (e.g. placebo work/autoheal/beliefs etc), diet, healthy parents and so on..