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European Year for Rare Diseases

Thank you for your interest in the campaign to make 2019 the European Year for Rare Diseases.

Over the last 20 years, EURORDIS and the wider rare disease community have advocated to raise awareness and to improve the lives of people living with a rare disease. We continue to do this and achieve success in our efforts.

EURORDIS is no longer actively campaigning to make 2019 the European Year for Rare Diseases and will be concentrating efforts on activities that raise awareness and move rare diseases up the agenda of policymakers, including: the European Reference Networks and the work done within the Joint Action on Rare Diseases ‘RD-ACTION’; new and developing proposals to improve patients’ access to medicines; Rare Diseases International and the NGO Committee for Rare Diseases, among others.