The Right Session for You: FPWR Conference 2019 Preview

You don’t want to miss joining like-minded gamechangers with direct access to the people, knowledge, and inspiration you need to help your child. Hear the latest in PWS research from experts in the field and engage one-on-one with researchers who have a deep interest in finding treatments for our loved ones with PWS.

And remember, we have something for YOU because this conference is for YOU.

The FPWR conference is for families of all ages—we have something for everyone! Highlighted sessions include:

Children Ages 0-2

Children School Age

All Ages

Research

Practical Tips for Meeting Motor Milestones

IEP’s- Setting Your student up for success!

At Home: Behavior Strategies

PWS Clinical Trials Panel

Standard of Care for PWS for Children Ages 0-2

Current Standards of Care- All Ages

Workshop-Mindfulness for Patients

The PWS Research Team Panel

New Diagnosis Pre Conference Session

Sensory Solutions for Everyday Struggles

PWS Researcher Fireside Chat

What have we learned about the Microbiome and PWS?

New Parents

Join us for a special session just for newly diagnosed families (children age 0-2). This special pre-conference session the morning of Friday, October 4th is for parents who have received the PWS diagnosis within the last 24 months. Meet other new families and learn from parents who are on this same journey. Lunch will be provided after the main session. Space is limited, please RSVP during ticket purchase.

P.S. We have a great deal on rooms ($150/night) but they are limited, and you will only get the discount code after you register for conference! To learn more and register, please visit www.fpwr.org/events

Melissa Demand

Melissa became involved with FPWR in 2014 after her son, Kemett, was diagnosed with PWS. That year she hosted her first One SMALL Step Walk which raised over $115,000 and earned herself the honor of hosting the FPWR conference in Austin, TX in 2015. Melissa has over 9 years of fundraising and development experience and a Masters in Social Work from The University of Texas with an emphasis on Community and Administrative Leadership. Melissa will be assisting with database management and administrative duties.

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives.