A Public Benefit, Non-Profit Organization

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"The KDA web site is a source of real information and even stories of other guys with the same problem. All of a sudden I was not alone, and also the information about the research going on gave me hope."

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The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease

KDA Services

You are not alone in your quest for a treatment and cure!

Because Kennedy’s Disease (KD) is a rare disorder, information and specific KD resources are not readily available through local or regional organizations. The Kennedy’s Disease Association (KDA) provides a support system expressly designed for those living with Kennedy’s Disease, including caregivers, spouses, significant others and families.

Our support sytem includes a KDA Worldwide Contact list that provides a list of worldwide contacts who have volunteered to help others living with Kennedy’s Disease. Find out who is located close to you and get in touch. Please Contact the KDA for a list of members in your area. Please include your country and state.

Our KDA Chat Roomis available to support those living with Kennedy’s Disease (KD). Researchers and other professionals are often guests. These informal chats occur on the first Saturday of each month and provide a means to develop friendships, share information, and gain support from others dealing with the same or similar day-to-day issues.

You should never have to feel alone with our Support Networkof friends who are ready and willing to help. We all have gone through stressful emotional issues with KD and it really helps to talk to people who have been through what you are experiencing. Our KDA Forumforum provides an opportunity to ask questions, share information, and build relationships. You will need to register for the forum to ask or respond to questions.