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Friday, September 7, 2012

My college roommate Jess. It had been 10 years!! So much has changed, yet she's still the sweet, sassy girl that I have so many incredible memories with. Aaaah, the ridiculousness of college. We shared a lifetime of laughter :)

Mom getting the hang of things

The appointment went incredibly well. I highly respect Dr NYC. He seems to be the perfect fit. He reviewed my entire case, and was able to recommend a few more supplements (printing out research proving the effectiveness against gliomas/astrocytomas). I shared my plan with Dr NYC, and we discussed pros and cons of my options. Ultimately, we mutually decided that the best course of action is for me to do the clinical trial, and continue on all of my supplements. Dr NYC and I will be in contact, and I will end up heading to see him again after the brain surgery, once I am healthy enough to travel.

After my appointment with Dr NYC, I immediately emailed Dr Liau to see if we could schedule the brain surgery. She responded within a couple of hours, and I now have the surgery on the books. My brain surgery will happen on October 18th, at UCLA. I'll need to travel little over a week in advance in order to complete all of the necessary testing, and I'll need to stay in LA for two weeks after the brain surgery to make sure that I'm healthy enough to travel. All-in-all it looks like I will be in Los Angeles for a month. Thank you to everyone who helped with the cherry fundraiser, for all of the donations, and the Crystal Seas Kayaking fundraiser. The money is going to be incredibly helpful! We're looking for a rental in LA close to UCLA so that my parents can stay there, then I can recover for a few weeks. Dan will be flying in every weekend to be with me....eeek....this is really happening!!!

As a final note, the most influential statement from Dr NYC was that he recommended the clinical trial since the results are so remarkable. He says that there's a chance that if I do the clinical trial, I may never need any further treatment ever again. It's not probable, but it's possible! The trial is still pending, and we won't know the results for years, but that's the point, patients are exponentially outlasting their "termination dates" - my words not his. There is a very good chance that even if it doesn't cure me, I wouldn't need treatment for years, and years, and years. This could be HUGE.

I'm terrified, and excited, and exhaaaaausted. So I think I will go nap. Love to you all! And thank you for always supporting me. Life changes so quickly around these parts, but one constant is the love from my friends, and my family. Thank you.

Wonderful to hear that the trip to New York was a success and that you have a definite plan now! Lots coming up in a short period of time but I see nothing but POSITIVE for you! You will conquer this Hermie character, get rid of him forever, and move on to a long and wonderful life! And I will continue to cheer you on along the way!!! Love You, "So Cal" Patti

I am so very excited for all of the wonderful news and possibilities! I will be thinking of you and your family in the days and month ahead! I can't wait to hear more wonderful news!! You are amazing and I am in awe of you!!

Yay! We need to get together... Glad things are going so well... My daughter Lorraine wanted you to know she left a prayer for you at the wall when she was in Jerusalem. We think God wants you to be 100% too!!!

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The Fundraiser

I am so grateful for the GoFundMe account that our friends set up. They started it last fall, because I stopped my treatments because of lack of funds, and now, possibly because of my lapse, I have a brain surgery scheduled for March 3rd, Dan's birthday. We are hopeful that our neurosurgeon will be able to remove the majority of the three brain tumors. But having it be out of state, it's complicated financially, and we are very thankful for your donations, and your prayers!

Disclaimer

This blog is intended to be informational, and hopefully at times, educational. It represents solely my personal opinion. This blog and my opinion are not meant to be construed as professional medical advice for any specific person or patient or condition. Qualified and licensed healthcare professionals should be consulted before considering or using any therapeutic product or drugs discussed in this blog. Definitely work with doctors and specialists to find your own cocktail approach. Please don't take my word for anything, do your own research.

Thank You Note

I read every single comment I receive on the blog and I'm incredibly grateful to receive them! I don't always have the opportunity to respond to all of my comments and emails, but I appreciate the support very much. Thank you for checking out my blog. It's incredibly therapeutic for me, and I hope you find my story helpful.