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Current Research Projects

CINK Study

CINK is a comprehensive neuro-kinetic physiotherapy program that has been shown in case studies to balance nerve impulses reducing spasms and chronic pain in Ehlers-Danlos syndrome patients while improving physical support and stability. The study will test the efficacy of the CINK method on Ehlers-Danlos type 3 patients. Please click here for more information.

EDS Research Projects from the National Institutes of Health

Chronic pain management clinical trials for pediatric patients

If you are a parent with a child that experiences chronic pain who would like to know more information about pediatric chronic pain clinical studies being conducted, or you are a healthcare professional aware of pediatric patients requiring analgesia who might be appropriate for and interested in participating in clinical studies, please contact Purdue Pharma L.P.'s Medical Services Department. Contact details for the Medical Services department are as follows:

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Vascular Emergency Information

Vascular Type EDS is considered the most serious form of EDS due to the possibility of arterial or organ rupture. If a patient presents with signs of chest, abdominal pain (etc.) it should be considered a TRAUMA SITUATION. Patient complaints should be immediately investigated using MRA, MRI, or CT-Scan testing — not x-rays.