The Pink Perspective on my life with Cystic Fibrosis

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This blog represents only my opinions and my personal experiences, and in no way intended to provide medical advice. Please consult with your doctor before making any chances to your health care regimen.

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Guilt

Warning: This blog post deals with death in people with Cystic Fibrosis. It is up to you (or your parents/guardians for those under 18) to decide if you want to read it.

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Why am I still alive at 41 years old, when so many people with Cystic Fibrosis didn’t get the chance to go to high school, college, have a job or get married? Why am I not on Oxygen permanently yet? Why am I not sick enough to need a Lung transplant yet?

Taken too soon.

Whydid Rita, who was severely sick from a very early age, die at just 21 years old, leaving behind a precious little girl and a shattered future? We shared a doctor and a hospital, and when she passed, it was the first time I ever saw my doctor cry. Continue reading →