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Tuesday, February 17, 2009

No Surgery at all Today 29/01/08

Hello everyone,There was no surgery today for a new Broviac line because Thomas was too upset.They will try again tomorrow and maybe sedate him before they take him to theatre. That way he will be nice and quiet.Today his heart was racing and he had a dirty nappy and he was crying, he was just not up to it.Update again tomorrow if he goes in.Thanks for all your replies I will get back to you later. I am going to go and give him a bath and a cuddle now.Julie

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Thomas

Thomas

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About this blog

Thanks for visiting my blog. These are my memory pages. Dedicated to the life of our baby Thomas who spent 4 1/2 months in the neonatal intensive care unit at the Royal Childrens Hospital in Melbourne, this collection of writing and pictures documents his life from his birth in October 2007 until he passed away in February 2008.I have posted the emails that I wrote to family and friends and some of the photos that I took. Some of the poetry was written by me and some of it I have found in my bereavement travels.Grief is not logical, I do not know where it will take me day by day, but I have found that it is better if I don't resist, it is better if I let it take me where it will.

Thomas

All of his teddy friends hopped in bed with Thomas the day he passed away

Our Beautiful Baby Thomas

Thomas was born on 17th October 2007 and he died 135 days later on the 28th February 2008.Thomas was born with Down Syndrome, Tracheal Osophageal Fistula and Osophageal Atresia, Tracheal Broncheo Malasia and Pulmonary Hypertension, he had a lot to fight.On the night he was born Thomas was transferred to the Royal Childrens Hospital in Melbourne for surgery to repair his Osophageus, that is when the Pulmonary Hypertension was discovered and surgery had to be stopped. We waited 15 weeks in the Neonatal Intensive Care Unit until he was well enough to have the surgery again. But in the weeks following surgery the Pulmonary Hypertension became more and more severe, to the point that the doctors told us that there was nothing left to do.Thomas died with me and his daddy and his brother and his nurse. We held him and talked to him, we watched him go, quietly he slipped away.I will never be the same again.