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With no one known to specialise in her condition in Northern Ireland or the UK, Jorja’s parents, Robbie and Carly, are hoping she will be treated in the US.

Mum Carly and dad Robbie with their little Jorja

They have set up a crowd funding page in a bid to finance the trip to The Brain Centre at Miami’s Nicklaus Children’s Hospital where specialists are waiting to see Jorja.

But this week Robbie says he has become a victim of vicious trolling with a number of people allegedly claiming that the fundraising is intended for personal use following the closure of his restaurant business in Holywood.

Jorja

Robbie, 30, said: “My priority is Jorja and her health and care. I opened the restaurant in Holywood on July 1 with big plans for a bright future, but on July 7 Jorja was rushed into intensive care fighting her life and we have been in hospital ever since.

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"I’ve been unable to work for the seven weeks and sadly I’ve had to close my restaurant until we get Jorja sorted.

“It has been a gut wrenching decision but as the dad of a very sick little girl, my priority has to be Jorja. She’s fighting for her life and her mummy and I are fighting for her every step of the way.

“As any family of a chronically sick child knows, the stress levels are high. But what has added to our stress levels is a series of vile comments, trolling me, Carly and even Jorja.

Little Jorja

“They are very disturbing, accusing us of using our daughter to raise money, accusing us of using Jorja as an excuse for having to close the business, calling me all sorts. They’ve posted a photo of my wee daughter, photos of me, photos of Jorja’s mum Carly. And one person has even said my home address will be posted online too.

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“I’d been in discussions recently to have my business taken over by an other businessman to keep it viable and working. The company would have carried on with a boss available to run it with all the staff required.

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“But all the online trolling has taken that decision out of my hands. The deal is off and the business is shut while I try to look after my daughter’s needs. I can make no apologies for putting my daughter first.

"I’m sorry I’ve had to close the business but I’ve just had no choice. When I get Jorja settled and out of danger, then I’ll be able to deal with work and all the related issues, but until then she is my priority.

Jorja is being cared for in the Ulster Hospital but needs her notes from the RVH to travel to the US for care

“At the moment my daughter’s life is hanging in the balance and we are desperate to raise enough funds to get her to Miami as soon as the health trusts here release her.

“But now I’m worried that slurs on my name posted on Facebook by trolls will affect the fundraising. I’m frightened for my daughter and the trolling is just making matters even worse. There are some very cruel people out there.”

Solicitor for Robbie, Marie Hans from Kevin Winters Law, said: “This is a very serious and distressing matter. The police have been informed and they are due to interview Robbie today.

Jorja has spent weeks between the Royal Victoria and Ulster hospitals, but is still without a personal medical care plan

“The trolls and the posts have been reported to Facebook and pre-action correspondence has been issued to the company.

“I also intend to send pre-action letters to the individuals we believe to be involved in the trolling campaign. There has been harassment and defamation and also the threat applied in a post saying Robbie’s home address will be posted online too.”