Imagine you've been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do?
My name is Avery Lynn Canahuati, I'm almost 5 months old, and this has become my reality. But before I die, there's a few things I'd like to accomplish...this is my bucket list and my story.
SHARE IT & HELP ME TELL THE WORLD ABOUT SMA!

Friday, April 25, 2014

We are extremely excited to share with everyone that enrollment is now open for Dr. Kaspar's Gene Therapy clinical trial (which your donations in memory of Avery went to via Sophia's Cure Foundation﻿)!

Thank you Dr. Kaspar, Sophia's Cure, everyone at Nationwide Children's Hospital﻿, and any other individuals and organizations involved for their hard work and role in making this trial available to children with SMA and their families.

And a special THANK YOU to everyone who donated any amount towards this trial in Avery's name! Once matched by Nationwide Children's Hospital and the generous anonymous donor, your donations through Sophia's Cure for this trial amounted to $1.5 million dollars!PLEASE CONTINUE SPREADING AWARENESS about Spinal Muscular Atrophy (SMA)!!!