That a LOT of support groups and forums and internet things in general... have Crohns first. The website will be Crohns and then on the actual site it will say for those with crohns and colitis. It makes me feel like they're belittling our disease because Crohns is worse. Like we come second or something.

I don't know... it's just something I've noticed. Am I the only one?Diagnosed with Ulcerative Colitis March, 07

No, I've noticed it too. I see way more magazine ads and tv commercials for Crohn's than I do for UCSamDiagnosed March 2005Remission since January/April 2006 (incident with mono)3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it"If you don't like something, change it. If you can't change it, change your attitude"Maya Angelou

i know it is... but it shouldnt take away from what we're dealing with...

it's like someone telling someone who lost a leg.... well it could be worse.. ya coulda lost two.. its just... who wants to hear that

and whatever you're going through is bad enough for you to be dealing with... so who's to say its not a big deal to youDiagnosed with Ulcerative Colitis March, 07MedicationsLialda - 4 pills in the morning w/ food.

I don't think there's really a contest, although at times it certainly can seem that way to us. Probably part of the reason Crohn's is mentioned first is that it was identified as a specific disease earlier than UC.

Judy

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

Avascular necrosis in both shoulders is my "forever" gift from Entocort.

i wish we were known more... any time i say i have a stomach disease... everyone goes... like crohns? YEAH like freaking crohns but not. Oh well.Diagnosed with Ulcerative Colitis March, 07MedicationsLialda - 4 pills in the morning w/ food.

Whenever I have to tell people what Uc is, I have to ask them first if they have heard of it and when they say no, I then ask them if they have heard of Crohns and when they say yes; I have to then proceed to say that Uc is like Crohns but limited to my large intestine (easy explanation because I don't want to get into the technicalities). I don't think that it's belittling our disease when Crohns is put first, it is just that this is disease that people have actually died from (my own mother died of Crohns) so it can be much more serious. But as long as Uc is being clumped in with Crohns, it is still strarting to get the recognition that it didn't have before. So it's all good in my book :)

i fully agree sherry and i say exactly the same thing to people..pretty much word for word.seems more people have heard of crohns and its easier to explain UC from there.steph - 32 - female - UC since 2000

currently flaring again.. grrr! (triggered by stress - grrr)

mesalazine granules 3g x1 a day (much nicer than a million tablets a day)

enteric coated fish oil -omega 3 (so they get all the way to my colon)

Honestly I don't see what difference it makes if "crohn's and colitis" is how it's titled, they are BOTH an IBD, personally I don't see what difference it would even make to anyone and I certainly don't see it in any way belittling UC...CD was recognized first from my understanding, even so, both conditions are an IBD...there are definitely bigger things to worry about than that....like how to get your IBD under control and keep it there.

:)My bum is broken....there's a big crack down the middle of it! LOL :)

I don't feel a bit bad about it. In fact I think occassionally I'm glad to have UC over Chrons, at least we have a surgery option!!! Also I don't enjoy having a disease that is well known and everybody under the sun knows what it is that I have - too much attention for me. On the flip side it doesn't help not to get the word out and get researching and funding. So that puts it in a pickle!! If I had my way I would love to have a cure and put all of it behind me, until then we must face each day as it comes and know we have each other to lean on.

And I know I've said it before but I too hate when people say "at least it's not Crohns". Yeah, and at least it's not cancer or leukemia or AIDs or herpes or hepatitis or the bubonic plague too. I understand life could almost always be worse but saying "at least it's not..." really devalues something. If someone was crying because their friend died, I wouldn't say "Well at least it wasn't your mom"; that doesn't make anyone feel better.

Well I can't help feelin the way I do. I just think that we should have things that are JUST Ulcerative Colitis.. I think that it should be just as widely known as Crohns and not just something... like Crohns.

Whatever. That's just how I feel.

Anyways I never said that crohns wasnt worse... I knew that already... but so is cancer so is i dunno.. liver disease. anyways. i shouldn't have even given my opinion.. just wanted to see if anyone else noticed we dont have lots of internet things that are just ucDiagnosed with Ulcerative Colitis March, 07MedicationsLialda - 4 pills in the morning w/ food.

I have crohns but I do agree w/ you sweet. Like the crohns and me website or the scholarship for people w/ crohns through UCB. But you UC'rs did get to go to that drug conference and they had no interest in talking to us crohnies. And so far all the meds I have taken were developed for UC but used on me, a crohnie.

To be honest, I enjoy reading both boards bc our issues are so similar. But there are many times I feel the UC'rs have it worse. I think with the disease being lower you have more urgency issues, more blood, and have to deal w/ fun stuff like rectal meds that most of us crohnies get to escape.

I am blessed to rarely have blood and no rectal meds for me besides prescription itch cream.26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Well I have crohn's colitis (CD affecting my colon) and as a crohnie my holding tank doesn't hold.

Why would UC be completely seperated??? It's an IBD just like crohn's, only it affects are restricted to the colon and rectom, crohn's can affect the entire GI tract from mouth to anus...maybe that's why crohn's is "first" because CLINICALLY it is worse.

:)My bum is broken....there's a big crack down the middle of it! LOL :)

this is the wackiest post....who cares which comes first? Crohns is more well known, so maybe that's why. But if you look at a disease like cancer, you generally find plain old "cancer" websites first, not a bunch of individual types of cancer websites first. Of all the things to bother a person, & this is it? Hey if it makes you feel better, you just may have Crohns after all! I'm totally surprised people feel this way- it never would occur to me to think along those lines. ANY chronic, incurable disease sucks. They are probably lumped togther because the meds used to treat them are basically the same- & if you do some digging, you'll find that a lot of the IBD "support" websites are maintained by drug companies.

No but you can definitely google Breast Cancer and not have Colon and breast cancer... on one website lol

It might not occur to you... I just noticed it that's all.

Also.. i NEVER SAID CROHNS WASNT WORSE AND I DEF DIDNT SAY CLINICALLY IT WASNT WORSE.... All I said is... I noticed more sites are crohns and colitis.. not just colitis.. was just sayin. Oh and if you're bothered by this post... move on... don't read... or get over it.Diagnosed with Ulcerative Colitis March, 07MedicationsLialda - 4 pills in the morning w/ food.

I know you didn't say it wasn't worse CLINICALLY or otherwise, I just added that for those who get stuck on "symptom" wise, which we all know, there can be a severe UCer that is "worse off" SYMPTOM wise than say a mild crohnie...because CLINICALLY, CD is considered a worse IBD than UC because of the simple fact that UC can be complete "cured" by having the colon/rectom removed, whereas that wouldn't do a crohnie any good symptom wise...ask any GI and they'll tell you the same...clinically speaking of course.

I have to agree with Eva Lou though, it is kinda pointless to get all worked up over this expecially because it's true that any incurable chronic disease does suck regardless of it's nature.

:)My bum is broken....there's a big crack down the middle of it! LOL :)

I'm just glad that there ARE websites for us.Back when I was diagnosed I didn't even have a computer!We should all be thankful for the wonderful resource that the Internet is,and the support we can give each other through sites such as this.The order the two are listed in doesn't affect the value of these sites to us one bit.Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily. Got Ryche?

Bottom line is they are both IBD and they both suck and in ways I actually think it's better that they don't single one or the other (CD/UC) out because think of all the extra work it might be for those who are newly DX and aren't even sure which they have...not to mention there are more things each have in common with one another than not, for example, same meds are used to treat UC as used for crohn's colitis because those meds are targeted to reach the colon/rectom and virtually all the same extraintestinal conditions can go hand in hand for either (osteo, arthritis, mouth ulcers eye conditions ect).

Don't you think it's actually easier that they group the 2 together rather than seperate them due to the above mentioned alone? Imagine how those with collegenous colitis (aka microscopic colitis) feel not having their condition plastered everywhere, they'd be happy to be grouped in with crohn's and colitis (which in some way they are because it's still a colitis condition but even less people have heard of it compared to CD and UC.

:)My bum is broken....there's a big crack down the middle of it! LOL :)