There are
different kinds of pain. Physical pain is a warning that something is wrong
with the body. Although we'd like to withdraw---and avoid---pain, it forces
us to pay attention to the area that hurts. This makes a lot of sense,
since the part that hurts is likely to be the source of the problem, and
most of the time we can fix it and make it go away.

However, treating
physical pain of terminal illness requires a few steps. If it's something
we can't eliminate [such as pain from invasive cancer,] then we must treat
the problem, that is the pain itself. This is called palliative treatment.
It deals with the symptoms and not the cause.

Secondly,
is the need to use enough medication to suppress the pain so the person
can function. So forget all the old myths about morphine and narcotics
addiction, and about how pain builds character. These myths are a bunch
of rubbish.

Pain is a
destroyer, and only when pain is relieved---whatever the cause---can we
address the other painful things associated with the ending of life. Only
when physical pain is gone can we deal with the spiritual pain, emotional
pain, social pain, and financial pain that comes with dying. These kinds
of pain must be relieved to allow the necessary closure of the dying process.
Perhaps a more positive way to look at this problem is to say that when
physical pain is relieved, there is opportunity for emotional and spiritual
growth at the end of life. Physical pain stands in the way of sorting out
these other, important problems.

Dying is not
"an event"; it is a gradual unfolding of very complicated and
intertwined process. It'll take the best efforts of everyone involved for
it to proceed to a peaceful end. Severe physical pain doesn't have a place
in this process.

These more
complex pains can't always be comfortably resolved, and there may be no
specific drugs to relieve them [except those that relieve anxiety and depression.]

When you're
talking to the person about pain, you need to discover the location and
severity---just how bad is it?

For practical
purposes, divide pain into mild, moderate, and severe or Level I, II, and
III.

Class I pain
can be treated with many drugs. Advil, aspirin, Tylenol, Darvon, Darvocet,
and the like usually provide relief.

Class II will
need stronger drugs that have an opiate as one of the ingredients. Tylenol
with codeine, Percodan, Percocet, and Vicodin are the common examples.
These drugs are usually a combination of several drugs and may require
a special prescription because of the federal law regulating controlled
substances.

Class III
pain almost always require a strong narcotic such as morphine or Dilaudid.

Physicians
who don't have a lot of experience with pain management---particularly
helping to relieve pain in dying patients---tend to underprescribe or ration
strong pain medications. This is usually because of unwarranted fears of
addiction, substance abuse, potential for overdose or fear of scrutiny
by the Drug Enforcement Administration [DEA]. Doctors inexperienced with
pain management also prescribe lower than effective doses simply because
of their lack of experience with the pain suffered by the dying patient.

There are
situations where the doctor may begin early using small amounts of a potent
drug to help mild pain. This is probably a wise move, since the patient
may need to have the dosage slowly ramped up as pain worsens. An increase
in pain doesn't mean that the disease is getting worse or that the end
is near. There is no upper limit to the dose of drugs such as morphine---so
discuss with the doctor the need to use a dosage strong enough to relieve
the pain, for as long as it's needed. Most patients will get relief from
medication given by mouth---medication by injection is painful, irritating
and not necessarily more effective.

Dying is both
a complex and yet paradoxically simple process. Understanding the diverse
nature of human beings, and dealing with all the facets of the dying person's
life, make the end of life the final stage of growth.

Terminally
ill patients have the right to expect good pain control. Patients should
not have to "earn" their morphine.

Suffering
in the presence of effective pain-relieving medications is inexcusable!

Suffering

Pain is caused
by stimulation of receptor nerve endings in the body that transmit impulses
to the brain. Pain notifies the brain that something is wrong. When we
notice an uncomfortable senation, we try to withdraw from it. When we can't
withdraw or remove the source of pain, we try to alleviate it with medications
such as aspirins, etc.

Suffering
is more than just a response to pain---it's the enduring, the tolerating,
or the bearing of pain. Suffering means all the unpleasant stuff that comes
with pain, such as fear, anxiety, and fatigue.

I think of
pain as a chain link. The first link is pain itself, the actual feeling
of hurt. The next link is suffering the pain, if it can't be made to go
away. The final link is anguish---when the pain becomes more than the person
can bear. Anguish can deeply threaten the quality of the person's life.
It's much more than an annoyance; it is when pain becomes the only thing
the person can be concerned with.

Enduring pain
and experiencing suffering and anguish are unnecessary. They also waste
valuable time---something in short supply at the end of life. We should
do anything we can to control pain and maximize the patients ability to
experience fully the remainder of life.

Remember:
Pain does not build character. Suffering is not a saintly virtue.

Physical Signs
Of Death

We can't exactly
predict exactly when death will occur. There are some signs you can use
to determine if the end of life is near. The patient may withdraw, be inattentive,
and express no interest or response to stimuli. The patient may sleep more
or even fall abruptly asleep. Many patients refuse food and fluids in the
weeks or days before death. If the patients body is still responsive to
irritants, body temperature may elevate from infections or due to cancer.
Closer to death, the patients body temperature might not be as reactive,
and may even drop.

Blood pressure
falls and urinary output decreases before death. The patient's pulse may
slow, but most of the time, it becomes rapid, thready, and sometimes irregular.
The dying person's skin may become clammy, and it can turn waxy-looking
and bluish. The nailbeds may develop a dusky color [a sign of low blood
pressure, slow circulation, and less oxygenation in the lungs.]

If the patient's
breathing is impaired, he or she may appear flushed from the accumulation
of carbon dioxide in the lungs. Few of these signs require treatment.

Deep and rapid
breathing alternating with times of no breathing [Cheyne-Stokes respiration]
is common. Observers may find this worrisome---particularly when breathing
stops. The so-called "death- rattle" that we see in the hours
before the end isn't always present. You can reduce it by administering
medications, avoiding excess hydration, and not forcing fluids on the patient.
Sometimes it's hard to remove the secretions that gurgle in the patient's
airway, since they're usually beyond the reach of most suction devices.
The "rattle" is probably more distressing and annoying to the
caregivers than to the patient.

Days to hours
before the end, patients may become less responsive and slip into a coma
from which they cannot be roused. Moaning during this time doesn't mean
that the patient is in pain. Also at this point the amount of pain medication
can be reduced.

Patients may
become agitated and restless, hallucinate, change their breathing patterns,
and may lie with eyes open while not appearing to see. As the end approaches,
the skin can become mottled or blotchy.

Reassurance,
touching, talking, and comforting should be extremely helpful [to both
the caregiver and the patient] during these final moments.

Witnessing
Death

Few people
have been present at the moment when life ceases. This is defined medically
when major vital functions stop, and death can be officially pronounced.
In most cases, death is the peaceful end of a struggle---a letting go into
a gentle rest. It resembles the sleep of a newborn after the rigors of
birth.

People don't
die as dramatically in the real world as they do in the movies. There's
nothing other-worldly about the transition from dying to death. With the
best preparation, the moment of death may come as a shock---but it's manageable.
We get through it. It seems as if our fears are always worse than reality,
and our ability to cope greater than expected.

For many people,
it's important to be present at the exact moment of death though in reality
that is not always possible. And it is not uncommon as well for caregivers
to express fear as the time of death approaches. Although you may not feel
this way in the days prior to a loved one's death, helping to ease the
path of the dying---and being there at the final moments---can be one of
the most meaningful, rewarding things you will experience.

Trust yourself.

The mark
of your ignorance is the depth of your belief in injustice and tragedy.

What
the caterpillar calls the end of the world the master calls a butterfly.