We are going to the doctors to insist we see a specialist with regards to my husbands APS. Evidently he saw one in 2007! If we did we were certainly not made aware of why we were as we have only recently had his APS confirmed to us following another stroke. This was supposedly a rheumatologist. So my quest is to speak to either a Haemotologist or rheumatologist but I'm unsure which is the most knowledgable about APS. I have found the list of both in our area that are recommended on this web site but wondered what other sufferers would suggest, please?

I asked for a referral to one of the rheumatologists on the Hughes site and the treatment I have had is top class. It took about four months to get my first appointment as it is a different health authority but shorter waits for follow ups.

If you do go to a hematologist, be sure that they specialize in thrombotic disorders (hemophilia, sickle cell, ect) not an oncologist who focuses on blood cancers. I have found the oncologist types useless with regards to APS. Also be sure to ask if they have ever treated APS before. I was patient number one for one doctor, who announced good news, my Lupus Anticoagulant test was negative, that meant I didn't have Lupus, right? Unbelievable!