A gymnastics superstar is coming! Olympic Gold Medalist Nastia Liukin will spend Sunday, May 19 with us! You have the opportunity to meet Nastia, win great prizes, and raise funds for The Alana Rose Foundation! The Alana Rose Foundation works to provide financial assistance to families with a terminal or life-threatening illness to help with[continue reading…]

The Alana Rose Foundation

Alana seemed to be a normal baby. She was hitting all of her milestones and almost crawling by eight months. All of the sudden, we started noticing extreme fatigue, constipation and dehydration. We knew something wasn’t right. Five days after her eight months she was admitted to A.I DuPont Hospital for children for 46 days. The hospital stay started with countless tried for an IV and blood samples, and treating for infant botulism with an antibody for the toxin while we waited for the test result. The antibody is not harmful with no botulism, so we were ok with the preventative treatment and had high hopes. We were expecting a full recovery, however, she wasn’t improving like they hoped. Ten days later, we got the test back and it was negative. We were back to the beginning. Here she was getting worse, and no one knew why yet. The next step was an MRI of her brain, and the results; devastating. The MRI showed advanced leukodystrophy. The image of her brain was very bright, and that meant white matter deterioration. Our hearts broke.

Leukodystrophy is the deterioration of the myelin sheath that protects the nerves in the brain. Without your myelin sheath, your nerve impulses get bounced around like an uninsulated wire, making the body unable to relay brain signals. To get more answers, Kyle and I waited, not so patiently, for the full series DNA sequencing test to return. When we received the results, we both found out that we had mutated BOLA 3 genes, however, Kyle’s mutation has never been reported. Her gene mutation is new and complicated. The results also showed that she has an unknown variant of non-ketotic hyperglycinemia.

Her brain suffered from the deterioration of white matter, high glycine and high lactic acid levels. The doctors told us that she probably won’t make it to her first birthday. Everything we ever dreamed of for Alana, was shattered. Her childhood was robbed; we were all robbed! She was supposed to experience so many things. We entered a very dark place. But with the help of our family, with the help of our community, and most importantly, with the help of God, we found our strength and perseverance. We found the true meaning of “I’d do anything for my child”.

Everyday was nothing short of a blessing to have Alana. Everyday we saw progressions in her disease. Alana fought so hard, and for so long, and beat all odds, and still smiled through it. She’s was our hero, but since December 16, 2015, at 15 months old, she became our guardian angel. We hope that she realizes how many lives she’s touched, and will continue to do. We will spend the rest of our life living to prosper her legacy. This foundation is for her and because of her, and we hope everyone enjoys the ups and downs of parenting, because some of us don’t get to experience it. Thank you to everyone who helped us spend Alana’s last days, together.

Thank you, and God Bless
Kyle, Alexa & Angel Alana

The Alana Rose Foundation works to provide financial assistance to families with a terminal or life-threatening illness to help with travel, housing and/or living expens-es for qualified families, making children happier and healthier by keeping their family together.

What began as a single family struggling to find a way to alleviate financial burdens to spend time with their daughter, grew quickly into a foundation committed to helping families remain together through hardship.

The Laurie Hernandez Experience! As you fundraise to spend a day with Nastia Liukin at Beach Bounders on May 19 and support the Alana Rose Foundation, you can ALSO earn a meetup with another gymnastics superstar: Laurie Hernandez! Every gymnast, with a Parent, who raises $250 or more between Saturday, December 29 and 11:59 pm[continue reading…]

Set Goals… with Nastia Liukin! Being an Olympic athlete involves countless hours of repetitions, drills and strength training. It’s a grind. After a grueling day the journal comes out and Nastia composes her thoughts from the day and plans out her short and long term goals. To help you make the most of your goals, we’ve[continue reading…]

Win an autographed copy of Nastia’s book, personally inscribed to you! Nastia has written a memoir, “Finding My Shine,” that describes her journey to gymnastics super-stardom. But the book is not just about gymnastics; it is about setting goals, overcoming obstacles, the importance of hard work, and much more. “Finding My Shine” is a great[continue reading…]

Who is… Nastia Liukin As a five-time Olympic Medalist, Nastia Liukin has dedicated her life to discovering her unique passions and reaching for the gold both on and off the gymnastics mat. Whether she’s mentoring aspiring gymnasts, sharing her edgy personal style, adventuring to gorgeous destinations, revamping her workout routine, or decorating her first dream[continue reading…]

The top 10 overall fundraisers will attend a private lunch with Nastia.

Current Top 10 Fundraisers

The top 10 overall fundraisers on Wednesday, May 15, 2019 at 11:59 PM Eastern will attend a private lunch with Nastia!

Emma Lovellette: $900.00

Alexandra Knapp: $800.00

Daniela Carrasco: $765.00

Abigail Mills: $650.00

Sophia Evans: $550.00

Cora Shue: $500.00

Zoe Tuttle: $480.00

Camdon Blades: $450.00

Alexa Wilkins: $430.00

Terra Berkheimer: $380.00

These fundraisers will attend a private breakfast with Nastia!

Emma Lovellette

Alexandra Knapp

Daniela Carrasco

Abigail Mills

Cora Shue

Camdon Blades

Zoe Tuttle

Alexa Wilkins

Terra Berkheimer

Maci Passwaters

Current Contest Tracking

The Laurie Hernandez Experience!

As you fundraise to spend a day with Nastia Liukin at Beach Bounders on May 19 and support the Alana Rose Foundation, you can ALSO earn a meetup with another gymnastics superstar:

Laurie Hernandez!

Every gymnast, with a Parent, who raises $250 or more between Saturday, December 29 and 11:59 pm Wednesday, January 16 gets to hang with Laurie when she visits EGS Gymnastics 4750 Winchester Blvd Suite #2 Frederick MD, 21703 on Sunday, January 20!

-Dance Party with Dancing with the Stars Mirror Ball Champion Laurie Hernandez!

This is an amazing opportunity to meet two of the most talented and inspirational gymnasts of our time!

Thank you for fundraising for the Alana Rose Foundation.

Sophia Evans: $250.00

Zoe Tuttle: $50.00

Kasi Showers: $50.00

Emma Lovellette: $50.00

Alexa Wilkins: $50.00

Ella Souder: $50.00

Fundraising Update

Fundraising for the top 30 ends on Wednesday, May 15, 2019 at 11:59 PM Eastern.

Current Top 30 Fundraisers

The top 30 overall fundraisers will attend an additional private gymnastics clinic with Nastia!

Emma Lovellette: $900.00

Alexandra Knapp: $800.00

Daniela Carrasco: $765.00

Abigail Mills: $650.00

Sophia Evans: $550.00

Cora Shue: $500.00

Zoe Tuttle: $480.00

Camdon Blades: $450.00

Alexa Wilkins: $430.00

Terra Berkheimer: $380.00

Maci Passwaters: $375.00

Kamryn Hitchens: $330.00

Lyric Campbell: $250.00

Eva Walter: $250.00

Sydney Green: $250.00

Logan Frostrom: $250.00

Ava Holland: $200.00

Brooke Ward: $185.00

Reagan Klahr: $160.00

Ella Souder: $135.00

Autumn Shores: $125.00

Olivia Truitt: $125.00

Kiersten Foltz: $100.00

Kate Kline: $70.00

Rachel Kline: $70.00

Kasi Showers: $50.00

Emma Orlen: $25.00

Madeline Rementer: $20.00

Tavy Childress: $10.00

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How You Can Help

Please find the fundraisers you wish to support under Registered Gymnasts, click on their fundraising page, and make a donation in their names to help raise funds for The Alana Rose Foundation so your favorite athlete can spend a day with Nastia Liukin!