I am a mom, caregiver and advocate for my son who is suffering from Huntington's disease. In my quest to find help and hope for my son, I promised him that I would share what I have learned with the world.

Melissa Biliardi

The Huntington's Post vision is to reach people all over the world who are battling Huntington's disease or who are interested in helping; provide credible yet interesting stories; always reporting the truth about what is in the news.The HD community deserves to knowthe who, what, where, when and how about all that is going on in the scientific, medical and advocacy world of HD. I have set out to help anyone who has our best interest at heart and may Heaven help the ones who do not.Always in truth, light & love,

DEAR GABY: I am a 31 year old man at-risk for HD and I am struggling with testing. I want to have kids but I don’t want to pass on this horrible disease. Should I get tested? Thank you for your help, MARTY W

DEAR MARTY, Getting tested for HD is an extremely personal choice. How old you are and your family’s HD history are just the start.

DEAR GABY: My husband was recently diagnosed with Huntington’s disease which is so devastating because we didn’t even know he had a family history of it. You see, he was adopted and never knew his biological parents. We have been married for ten years and have three young children, now all are at risk for HD. My heart is broken...

DEAR ANNA: In my opinion it is best for parents to talk with their children about HD as early as possible. Lies and omissions are unhealthy in any relationship particularly between a parent and child. As in conversations about sexuality, parents want their

DEAR GABY: My husband has been sick with HD for ten years now. My younger she put her feelings to the side to help us manage her dad? Susan

DEAR Susan, it is very fortunate that your husband has a support system. Some people with HD are isolated and alone. In spite of that, there could be many reasons why your older daughter is not able to support her dad’s needs.

DEAR GABY: I was a caregiver for my sick husband who died ten years ago, and I have two at-risk children. I have always been so anxious about my children’s risk status and feel like I have no hope for them. I can’t talk with them about HD. Can you please help me? Signed, Anxious

DEAR Anxious: You are not alone in your fear. The HD that your husband experienced was a long and difficult process filled with a lack of understanding of the why or how he behaved the way that he did. And, thinking every moment about your children’s risk was no doubt very stressful for him, too.

DEAR GABY: My mother is sick and dying with HD, and my father just had a feeding tube put in. I don’t know if I want that for her. What do you think I should do? From a concerned daughter...

DEAR Concerned Daughter: This is a very important question and goes to the core of who people are. Some people feel that they only want to live if they are breathing on their own. Others feel that if science will permit them to continue to live, maybe they will use that to try and recover or even to be able just to stay alive longer. Some family members feel that refusing to give a feeding tube is “playing God.” Others feel that the person who's sick is suffering, and they do not want to prolong that suffering.