Top Menu

A healthy mind locked inside a frozen body. A cure is near, but we need to keep research funded to perfect it in time for those with FOP. Your role is crucial in preventing one of the world's most debilitating conditions – forever! Hope rests with people like you, people who care. Please become a FOP Friend.

Funding a cure

Finding a cure can only be achieved through providing financial support to those institutions carrying out research. FOP Friends presently supports the IFOPA and Oxford University in providing funding to enable research to continue.

The International FOP Association is a non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). Our mission is to fund research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy.