Supporting Children with Brain Tumours

Levi’s Star

Levi’s Star was established as a charity in August 2008. The charity is in memory of my gorgeous little boy Levi, who tragically lost his precious life to a brain tumour, just 6 weeks after the devastating diagnosis. Levi was only 6 1/2 years old. (See Levi’s story) Levi’s Star supports children with brain tumours and their families throughout Yorkshire.

Our four objectives are…

Offer grants to children with brain tumours in the Yorkshire area

Raise awareness about this devastating disease

Promote research into centres for cures of brain tumours & research into survivorship programmes

Offer support to children/young adults living with the effects of a brain tumour during and after treatment

How You Can Help

Donate to Levi’s Star

Support one of our events

Organise an event of your own for us

Spread the word

Click on a twinkling star to see how we are helping

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Cameron Cameron was diagnosed with an anaplastic ependymona grade 3 and is receiving palliative care. His family want to take Cameron on some special outings, including a trip to Euro Disney, whilst he is well enough to enjoy them. We helped them achieve their wish by contributing financially.

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Peter, aged 17 in November 2004 Peter was diagnosed with a medullablastoma. He has had many ups and downs over the last few years. We were able to help towards the purchase of a lap top, which made Peter happy.

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Neeve, aged 3 Neeve has a brain stem glioma and is receiving palliative care. At the moment she is well enough to go on special outings with her mum. We helped fund outings and special treats for Louise and her mum.

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Zane, aged 1 was diagnosed in July 2010 with an ATRT brain tumour and second lesions on his back. Zane needs lots of nappies, but the incontinence nurses can only supply nappies to children over four years old. We provided a grant to purchase some extra nappies for Zane.

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Charlotte, aged 10 was diagnosed with a brain tumour in August 2009. She is undergoing radiotherapy and despite travelling many miles each day she is still managing to go to school! We were happy to provide a grant so that Charlotte could have some well deserved treats.

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Luke, aged 23 was first diagnosed with a brain tumour September 2003. He now has a relapsed brain tumour which sadly is non-curative. Luke needed to be cared for in a hospice and his family needed help towards the cost of travelling to visit him regularly. We were happy to help with these expenses.

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James, aged 24 was diagnosed with a brain tumour and has had frequent surgery, radiotherapy and chemotherapy. His condition is non-curative. We contributed financially towards a much needed family holiday for James, his wife and their little girl.

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Jason, aged 2 was diagnosed with a brain tumour 2011. His parents asked if we could help with a special tricycle to enable Jason to get a around the farm on which they live. Levi's Star was happy to help.

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Declan, aged 7 was diagnosed with a medullablastoma in October 2010. The family income has dropped drastically during Declan's treatment. We provided them with a short break in Levi's Star caravan and we provided some money for treats for Declan and his brother whilst on holiday.

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Rebecca, aged 8 has an Anaplastic Astrocytoma. Her mum is not working at the moment and family finances are becoming difficult. We were happy to help take some of the pressure off the family and allow them to buy some special treats for Rebecca.

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Harry, aged 4 in December 2008 Harry was diagnosed with a Medulloblastoma and due to this has mental & physical disabilities. His family moved house to accommodate his needs and we helped to cover some of the cost of essential items for their new home.

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Jon, aged 20 has had a recurrent and increasingly difficult to treat Ependymoma since 2000. Jon enjoys playing the guitar and recently played his first "gig". Unfortunately he had to borrow additional equipment for his guitar. Levi's Star helped him purchase the extra equipment ~ this will allow him to play at other venues with his own equipment.

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Marie, aged 19 has a relapsed Pilocytic Astrocytoma (second relapse) and has just finished two years of chemotherapy treatment. A cottage holiday has been arranged for Marie and her family and Levi's Star has helped with expenses for the weeks holiday.

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Alisa, aged 9 was diagnosed with a brain tumour in February 2010 Sadly Alisa's tumour cannot be treated and her family are spending as much time with her as they can and so are unable to work. We sent a grant to try and ease the financial strain and enable Alisa's family to buy her the things she needs.

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Scott, aged 2 was diagnosed with a brain tumour in June 2009.Scott's dad was later made unemployed and the family needed a new washing machine, as theirs was broken and could not be repaired. Levi's Star was happy to contribute to the cost of this.

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Mya, aged 18 month has a brain tumour and has had chemotherapy treatment. Her parents have had to reduce their working hours to take care of Mya. Levi's Star enabled them to give Mya some treats and buy special foods for her.

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James, aged 8 James was diagnosed with an anaplastic ependymoma and has been in the USA receiving Proton treatment. After his treatment had finished the hospital donated a holiday in Disney Florida for him and his mum. Unfortunately they did not have enough to cover the everyday costs of this trip and Levi's Star was happy to help with this.

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Sian, aged 5 was diagnosed in 2008 and relapsed in 2010. It had been a difficult four years for Sian so her family planned a holiday. It was our pleasure to provide some spending money for Sian to buy some really nice treats on this well deserved holiday.

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Lucy, aged 5 in Sept 2011 Lucy was diagnosed with a Grade 1 Pilocytic Astrocytoma brain tumour. Lucy had to stay in hospital for two months and is now undergoing 18 months of chemotherapy. Lucy has a sister and brother and we helped the whole family to have some treats and outings, which we know they thoroughly enjoyed.

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Russell, aged 14 weeks in June 2011 was diagnosed with a Teratomal Hamertoma brain tumour. His elder brother had to spend time with grandparents whilst Russell was in hospital. Levi's Star was able to make time for the whole family by offering them a short break in our caravan. We also gave some money for some special treats for his brother.

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John, aged 17 was helped previously by us to have flying lessons, but unfortunately he is now receiving palliative care. His mum wanted to have some special outings for the whole family whilst John was still well enough to enjoy them. Levi's Star was more than happy to fulfil this request.

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Charlotte, aged 10 was diagnosed with a brain tumour in August 2009. She is undergoing radiotherapy and despite travelling many miles each day she is still managing to go to school! We were happy to provide a grant so that Charlotte could have some well deserved treats.

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Anna, aged 3 was diagnosed with a brain tumour in July 2009. She and her three siblings are cared for by their Mummy who is a single parent. Having recently moved house her Mummy wanted to redecorate and carpet Anna's bedroom to make it a safe and warm environment for her little daughter who is also registered blind. Levi's Star was very happy to help with this.

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Liam, aged 17 was diagnosed with a medullablastoma in 2008. He was coming to the end of a long course of treatment and feeling quite low. Due to his diagnosis, Liam had to put an apprenticeship on hold and needed something positive to focus on. We therefore helped to fund his motorbike restoration hobby.

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Arslan, aged 3 was diagnosed with a high grade Glioma. Unfortunately Arslan is now receiving palliative care, following disease progression. He has never seen his grandparents who live in Nigeria and his parents were desperately trying to raise the money to fly them over. It was our pleasure to contribute towards the cost of this - Arslan is very excited at the thought of seeing them.

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Carl, aged 20 was diagnosed with a brain tumour in July 2009. He had to take time off work to undergo and recover from surgery. Carl wanted to go on holiday with friends before starting radiotherapy. We were happy to help to fund this much needed holiday.

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Nathan, aged 4 was diagnosed with a medullablastoma in 2006 and relapsed in 2007. His family wanted to take Nathan on holiday to the Isle of Mull (Balamoray!!). We helped to fund this very special trip for Nathan and his family. After Nathans trip to Balamoray we funded several outings & treats for him and is sister, as sadly he began to receive palliative care.

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Alex, aged 9 has a medullablastoma and was diagnosed in 2007. Her mum cares for Alex full time so money is understandably short. Alex loves to watch TV and they needed help to pay for the licence. We bought this for Alex and her mum, as well as some extra treats for the little lady.

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Harry, aged 13 was diagnosed in 2007 and now has a relapsed medullablastoma. Due to his condition, extreme tiredness and access issues, Harry had missed a lot of school. We helped towards the cost of a laptop that Harry could use both at home and school that would make life easier for him.

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Jane, aged 10 has a relapsed glioma (brain and spine). She experiences decreased mobility as a result of her diagnosis and side effects. Jane can no longer walk to school, to town or to her friend's houses or clubs. As no-one in her family drives, we paid for taxis to enable Jane to continue to participate in school and leisure activities with her peers as much as she is able to.