Monday, September 8, 2008

The fingers have been FOUND!

Well, most of you know that Blair doesn't take a pacifier. She did in the hospital, but once we got home she really didn't "want" one. So, I stopped giving it to her. She has always sucked on her fists, but never really on her fingers.

The past couple of days she has really managed to get her thumb in her mouth. This morning when I went in there to feed her at 6 she had her two middle fingers on her left hand in her mouth just sucking away. It was TOO CUTE! I guess she can never lose them and they will always be with her!

Baylee was a binky user! BAD! Up until she turned 2 she always wanted one. And, if she didn't have 2 or 3 in bed with her at night she wasn't happy! So, at least we won't have to get up 15 times in the middle of the night to put it back in her mouth!

Pageant practice went well. Baylee was SO GOOD I was actually impressed with how well she listened to the lady helping us. I've got to pick up her dress today when the lady calls me!

Crazy story about our dog! Friday night... actually Saturday morning at 4am I awoke to it lightning and thundering. Then, I heard our dog freaking out in the backyard so I thought I would go check things out. She's been on her runner because she's been jumping over our fence. Yes, our 6 foot privacy fence. About the time I got down our hallway Britt was right behind me and then there was this LOUD sound. It sounded like someone was tearing the heck out of our window. Almost to the point where I thought someone was breaking in our house. See, it has been nice the past week so we've been sleeping with the windows open. So, I ran to the kitchen and turned on the light to find our dog IN our house and mud EVERYWHERE. At least the mud was on the kitchen floor and not my carpet! She tore the screen on the window and jumped in. (Our windows are close to the ground) I was upset to say the VERY least. At least the screen is only $20.00 to replace!

Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!