Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

sores in your hair?

Ummm ok how do I explain this one. Well this week I started wearing makeup to work again. The only makeup I use is for sincitive skin and it expincive. Im not sure if its the makeup causing this or if its lupus. I noticed about 2 weeks ago I have started to get little bitty sores in my hair. Like a little pimple or like an ant bit if that makes since. Today I got up and found 2 sores in my eyebrow and more in my hairline. Has this happend to any of ya'll? I know im in a flair but this has never happend. Please help............Jules

I constantly have sores in my head. They sometimes bleed and my head itches. However, I have never had them on my eyebrows. I am currently having a flare and my DR. looked at my head and stated that it is common and they can get pretty bad at times. I notice that when I go off my prednisone it gets worse. Also, Neutrogena makes a shampoo and conditioner called T-GEL this seems to help a little especially with the itching. You might try it. Hope it goes away soon, I know it is irritating!

i suffer from sores and eyebrow sores that bleed and are very irritable - i use steriod cream to ease the ones on my face. But it makes me very self consious. just got over the a bad flare the sores have increased. Just go and see your GP for advise he was very helpfull - i also suffer from mouth sores.

My doctor calls them lupus lesion.I had a biopsy done on the ones on my scalp,the dr anesthetized the lesions with lidocaine/epinephrine,then on the next visit, the lesions was injected with kenalog.Sorry to say this procedure did not help.Steriod cream well ease the pain and you will get some healing,but i find mine never heal up completely Also Sun or flourescent lighting seem to make them worse.And alway wear a hat outdoors!Hope this helps,lisazz

don't rule out something like Pemphigus - just another auto immune condition this resembles little bumps that contain clear liquid and it is itchy, if you get a biopsy done you will get a true picture of what the cause is and how to treat it

I have sores on my head in the same area all the time they seem to go away then come back. I thought at first it was my hairsray then I quit using hairsray and they returned. I notice they get really bad through my menstrual cycle. Yes I also have sores on my tongue that looks like ulcers that come and go mainly if Im in a flare and they are painful. Also I have found that selsom blue medicated shampoo helps with the sores on the head. Hope you find some thing that works for you.Take care

If you decide to go with a steroid cream, please check with your doc 1st. All the doc's that I work with will not order our patients any steroid cream that has a high % because too close to the eyes can cause blindness. Those of us in the Lupus community don't need to add anything else to our own set of problems. And, yes, I do get these at times. However, I also have Acute Febrile Neutrophilic Dermatosis and the sores or placques as they are called are 100 times bigger than my Lupus ones and much more painful. They require extremely high Prednisone dosages and they bleed all the ime untl they are completely healed up. I have one on my finger right now that I have been trying to heal for over 3 months. Good luck to you.

those sores can be lupus related or discoid lupus.......it is common to get these sores on your scalp as well as having mouth sores/ulcers........I get them often as well......for the scalp I have tried many OTC products like T-Gel......Selsun Blue.......etc but none of these helped......then I found a natural home remedy that helped more than anything I ever tried.....it can also be used on your face as a facial cleanser........it is made with the Rosemary plant.........boil 3 or 4 small branches of rosemary in about 6 cups of distilled water....boil for 5 minutes.......cool this then bottle it &amp; store it in the fridge.....rinse your hair with 1/2 cup of this concoction......dab it on facial sores using a cotton ball..........this preparation really helps stop any itching &amp; is safe to use around the eye area if you get those sores in your eyebrows........another home remedy is to put a tablespoon of apple cider vinegar in 1 cup of distilled water then dab on the sores or rince your hair with 1/2 cup of this mixture.........I have tried these remedies &amp; they work for me

I had that a couple summers ago really bad for months and I tried all sorts of creams and tonics to get rid of them. After going to several Derms, I finally went to one that recognized the flaky, crusty, and weeping sores as Lupus and he gave me an rx for desonide lotion. They went away in a matter of days once I started using it. My derm told me that the desonide is extremely safe to use and that he prescribes it for babies it's that safe. Every now and then I'll get some spots on my eyebrows and in my hair and hairline and I just put some desonide on 'em and they go right away : )

Hi there,
Hi Jules, sorry to hear about your sores. What symptoms do you have that you know you are in a flare.
I was just about to put a question here regarding lumps and bumps. I noticed a pimple like lump but a long shape on the right side back of head it went away. A week or so later noticed lump left side neck about couple of inches below ear and back of neck which and within a couple of days another little long pimple again but on the left side which dissappeared in a couple of days, the swollen gland lump has been there like 2 weeks now and now noticed lumps in groin and pain under armpit. Is this effects of lupus and does anyone else experience such. I think the little lumps must be now due to lymphatic system.
I also have MS, underactive thyroid, fibromyalgia, sjorgrens syndrome,osteo arthritis in knees. Just a bit difficult to work out what is what at times. Sorry didn't want to make this about me or detract from your question but I didn't want to double with a similar question. hopefully we will get some more answers together. Thank you Dee

I have had sores along the hairline on my forehead for over 8 months now and some on my right elbow for about 6 months. Just when I think that they are going to clear up, they open and ooze again. Lovely to look at so I have to keep constant bangs.

I get the sores on my head often. there terrible they do itch. I use Tgel shampoo it helps some. I haven't been deffinately diagnosed, but my ana been + since 1995 + sypfilis test since 1991 and all kinds of symptoms. I also get sores in very private areas. Freaked out when I was Pregnate thought I had herpes. Dr did test said it wasn't n she thought it was psorisis. That's when it all started getting really bad when I was preg with my first baby. almost lost her. was on bedrest from 5 weeks. hope to have answers soon.

So today was my birthday, yet it's made me feel down. I got a text from my mum and one of my sisters (I have 2 sisters, 1 brother), my mum dropped off a present and card from her and my dad. My boyfriend only remembered it was my birthday after I'd told him about my daughter singing happy birthday to me and he posted on Facebook. Then he caused an argument.Yeah I got messages on Facebook, but...

Minutes, days and weeks go by. And no one gives a care about what I am doing or if I am alive or not. I only hear from Family when they want something. Supposedly my “friends” don’t even text or call to see if i want to go somewhere or do somthing. I could die and it may be days before anyone would miss me.

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