Child may be autistic...advice or support welcome

Jenn - posted on 05/26/2012
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Hi my 2 1/2 year old son is being tested for autism.. He has trouble playing with other kids and prefers to be alone, he tip toes 95% of the time, he gets very upset over minor things and is hard to calm, he rarely eats, he gets very upset about changes in routine and he is terrified of loud noises. he also has a very above average memory and doesnt forget ANYTHING! Besides those things he is just like most the kids his age. he is very verbal and plays very well alone. So I want honest answers from the people who know best..does this sound like autism? Also any support or guidance on this path we have just started on would be appreciated. Would love to hear stories of similar children and how they are doing.

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Stacey - posted on 05/29/2012

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The evaluation will be just like anything else. Mine was quite easy to deal with. They will watch him for a while and then do some testing. They will watch him walk, have him talk, play with him, test his memory. My son eats only a few things. He will only eat chicken nuggets, peanut butter sandwiches, and very few snacks. There are no fruits or veggies in his diet. That's because of the sensory issues. If you can figure out what he is liking to eat, maybe you could get him to eat more. We found out that mine is lactose intolerant and that was a big part of him not eating. Make mealtime fun. Have a picnic at the playground. Have a picnic outside in your yard. Go to his favorite place and eat. Try to make it about him and if he sees you eating some of his favorites, he may start back up. Let me know how things are going!

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Stacey - posted on 05/30/2012

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Oh and one more thing, keep all the papers they give you. Anything you have to sign, you may need down the road. I'm going to be buying an external hard drive and putting all my important documents on it.

My son was diagnosed PDD NOS at 11 months corrected age. He never ate solids and that was a red flag. He also tip toes and didn' talk. He bangs his head and rocks back and forth. After immediately talking Him to a neurologists had a clinical psychologist Come in and diagnosis him. He started receiving OT and feeding and speech and ABA for about 37 hours a week. It has made such a difference.

Im not really that upset...I guess in the back of my mind i always knew he was a little unique. It doesnt change the baby that I know it just gives me an answer to why he does things differently. Could you tell me what to expect at the evaluation and maybe some things I could do to make it go smoothly? Ive started taking videos of him hoping that will help them see him in his normal atmosphere. The only thing im super concerned about is he has stopped eating. its always been a struggle to get him to eat but He hasnt been eating at all for over a week, i mean nothing except maybe 2 chips all day!! Any tips on how to get him to eat??

Hi Jenn! I have an 8 year old son who is diagnosed with PDD-NOS. I just wanted to tell you to keep your head up and everything will be okay. You will be getting bombarded with a lot of information soon. Digest it one piece at a time. You may be upset over the diagnosis, that's normal for a lot of people. My son is mainstream schooled and is doing amazing. Other parents are going to have different stories. If you want to ask me anything, I am more than willing to answer. Good luck!!!