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Tuesday, August 28, 2012

Resurrection

“While you’re not a miracle, you are about as close to a
resurrection as we ever get to see.” –Dr. Dunn, Vascular Surgeon

Leave it to a doctor to minimize the miracle part of this
story.Personally, I think Michael
is both a miracle AND as close to a resurrection as most of us will ever be
witness to.

Walking with a cane

Michael continues in his rehab over achieving ways. I am
marveling daily at how normal our lives are becoming, how typical he is, and
how blessed we are to continue to see him return to baseline (and dare I say
maybe even a little better).

The Open House was amazing!!It meant so much to us to have a chance to thank so many of
the people that have been traveling this journey with us. It meant so much to
have the chance to show my man off, for all to see that he really IS okay, that
he really WILL be whole again.

We have another miracle happening here too, as amazing as
that is to say…..My Madison is back!! After 4 years of extreme fatigue (a
shower would be the most she could manage on any given day as of late),
starting with contracting Mono & walking pneumonia, we seem to have found a
big part of the problem…..and it could not be simpler to treat.

Because of a lab result that has continued to be abnormal
even as we have gotten the other parts of her CBC back in the normal range, our
beloved pediatrician pondered whether she might be deficient in Vitamin B12. We
decided to try giving her an injection of B12 last Thursday, and I will admit,
neither Madison nor I were all that hopeful.

Within 2 hours it was clear the B12 was making a
difference…..by 72 hours later we were sitting here in awe.

We didn’t talk about it a lot, but Madison’s fatigue issues
had become profound. This wasn’t like someone being tired or low energy, she
was at times almost “bed bound” and even on a “good day” it might mean that she
could manage a quick outing or a shower, but definitely not both. She was
missing out on life, and while we were all making the best of a difficult
situation, it’s been heart breaking to watch.

Since Thursday of last week, Madison has had as much, if not
more, energy than her siblings. She has been up and moving more than sitting or
laying down. She is bubbly and talkative. She is like a whole new person!!! She
is a miracle!! B12 is a miracle!!

I am waiting to hear what the plan is to handle this issue
long term, and reveling in thinking of all the awesome things we can do as a
family this fall…..something I was not feeling good about at all with her, a
short week ago…..something I wasn’t even capable to thinking about as a family,
even a month ago.Plans for the
fall…..fun things to do…..time with the family as a whole…..how remarkable are
those thoughts!!

About Us

I am Heather, married to my high school sweetheart, Michael, for 28 years and we are the proud parents to three amazing young people. Chance is 23, Madison is 20, and Abigail is 18. All three are awesome young people that any mom would be proud of. They are kind, giving, loving, resilient, confident and selfless. They all also deal daily with the effects of Mitochondrial Disease (Mito for short). While they have Mito, they are not defined by it. We welcome you to this exceptional life we lead!!!