Colorado Chapter

Welcome to the Colorado Chapter!

Next Chapter Meeting: Please mark your calendars for Saturday, March 23rd for our next meeting! Location will be updated soon, and further details can be found on our Event posting here. We hope you can make it!

We officially launched our Chapter on Saturday, October 13th, 2018 with a fabulous community of patients, family members, researchers, clinicians, and friends. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other.

This year, we were proud to host our 3rd Annual Walk & Roll to Cure FSHD fundraising event! Our fundraising efforts exceeded expectations, and we raised $65,651! We are so grateful to everyone who walked, rolled, volunteered, sponsored, and donated!! Finally, please Save the Date: The 4th annual Walk & Roll will take place on Saturday, September 14th, 2019!

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Meet your Chapter Director: Amanda A. Hill

I grew up here in Colorado and live in Highlands Ranch with my husband, Justin, and our two adorable yellow labs. Justin was diagnosed with FSHD in 2016 at the age of 31 and the disease has since impacted our lives greatly. I work in biomedical research and I am passionate about health and scientific education and advocacy, so becoming involved with the FSH Society was a natural and obvious step for me. Beyond the FSHD, Justin and I love nights out in Denver; gardening and enjoying our backyard with the dogs; all things having to do with food, cooking, wine, and beer; and researching cleaner, safer, more sustainable lifestyle changes. I am honored to be the FSH Society Chapter Director in Colorado and am excited for our community to be able to grow together.