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LITTLE Hunter Einam has been in and out of hospital his whole life.

The three-year-old Calliope boy has chronic kidney disease - and after being admitted to hospital in Brisbane two weeks ago with pneumonia and a bladder infection - he has been left with just 7% kidney function.

Hunter will start dialysis in the next three weeks and then he will be put on the kidney transplant list.

His father Garry is back at home, in Calliope with his two other children, doing tests that will confirm whether he is a suitable kidney donor for his young son.

Mum Melissa said doctors had told the family that was the best hope for Hunter's survival.

"A parent's kidney will give his body the best chance of accepting it," she said.

"Garry has… been tested. Now we're just waiting on the smaller tests to be compatible.

"There is nothing he wouldn't do for his son."

Melissa Einam has written a moving story about her son's life in and out of hospital.

It starts: "Our little man Hunter has had a very rough trot from before birth.

UNITED: Hunter with his family, who is trying hard to give him a normal life.

"At 12 weeks along in the pregnancy we discovered we were having identical twins, which we were most excited about. But during that scan they could tell something was wrong straight away."

It was a "race against time to try and solve his diagnosis".

Mrs Einam said the constant hospital visits, the medical bills and the worry had been hard on the family.

"I shut down my business to be his full-time carer," she said.

"We were down here (in hospital in Brisbane) just a month ago. All the days are starting to blur."

From the day they arrive home in Calliope, they start preparing again for the next visit to Brisbane.

"We're always at the ready," she said.

"We get everything out of the bags, wash it and pack it all back in again - just in case."

Despite the constant upheaval, Mrs Einam said the family was still trying hard to give Hunter a normal life.

"He doesn't really understand what's going on," she said.

"He's just the happiest kid and unless we told you, you wouldn't even know that anything's wrong.

"He loves going crabbing and motorbikes and FaceTiming his family when we're separated."

The family is asking for support from the community, so they can fundraise and then learn how to use a dialysis machine and finally come home.