Hi all, my daughter has aspergers, anxiety and gets depressed and has been getting DLA and PIP for most her life always middle or enhanced. Changed to PIP no problem at 16 but renewal came after 2 years and invited for assessment. Went just before Christmas and received report yesterday saying she gets no points at all! Everything that she told them they disagreed with, even though the assessor agreed nothing had changed. It blatantly appears that they’re lying in their answers. I’m so angry that what is written down is not a reflection of the truth. She cannot cook safely, she set fire to a tea towel once and has left gas on with no flame! She can only shove ready meals in Told them this and they say she can cook! She stresses when out and about and won’t talk to strangers but they say she can go out no problem, she is vulnerable when out also. They have said she can make complex money decisions, if you call running up a £300 phone bill, ordering parcel after parcel from the internet and running out of money every month, being able to manage money! She wont talk to people on the phone. So many things she can’t do but they say she Can! So now she has no money, no bus pass and no job ( looking and applying for one with no joy) has anyone else had this problem and what did you do? I know I can appeal, but they shouldn’t get away with lying! Also it leaves her with no money, so she will get really depressed as she won’t be able to go anywhere! Any advice greatly appreciated Thanks everyone

Hi! What a nightmare this new system is. My grandson has Aspergers and has also lost all his benefits. This leaves his single parent Mum to finance herself and two younger, very bright girls and him. I am also furious with this government for slamming the door to life for our ‘kids’ by demolishing day care which involved learning a skill.

So … accept this for what it is, a nasty, spiteful way of saving money. Do what they hope you won’t, appeal, get advice from the CAB (they are dealing with thousands of cases every week and know all the wrinkles) and ensure that your daughter is well-briefed on what to say if she gets another interview … although I am afraid that they do consider it adequate for our special kids to live on ready meals!

I’m sorry to hear your grandson has had the same. There is a real problem with majority, especially government and councils not understanding ASD. Our kids are not disabled enough to warrant social care support, bus passes or benefits but are not capable of living a “normal” life either! Have sent off my mandatory reconsideration today, so will see if that gets us anywhere! Have had help from CAB who have been great so far. It’s disgusting we have to fight for anything, what the DWP, government & councils fail to realise is we, as unpaid carers are saving them so much money by looking after our special kids. But I worry for these kids when there is no unpaid carers to take care of them anymore!