Tuesday, August 2, 2016

Upped the dose again

So Cailyn is doing awesome. We upped her dose again July 29th to .50 ml dose 5000mg twice a day.We'll test blood in a few weeks and then we see neurologist again in mid-September. We'll see if we can take away an RX seizure med at some point soon. She's doing great. A few seizures here and there but she's super awake and alert.... and HAPPY. Fun giggles often.Camp has been awesome this summer. Lots of great activities---swimming, horseback riding, dance parties and a sensory room with glowing and lights that are K's favorite.Today they had a color run.