SBCC History

The Spina Bifida Coalition of Cincinnati is a 501(c)3 non-profit formed in 1973 by parents and professionals caring for children with spina bifida.

Many of the original founders of the Spina Bifida Coalition of Cincinnati were also framers of the national Spina Bifida Association and influenced early efforts in advocating for quality healthcare for children with spina bifida, multi-disciplinary clinics, Baby Doe legislation, and AFP (alpha feto protein) screening.

In 2013, we became an independent organization separate from the national Spina Bifida Association and changed our name to the Spina Bifida Coaltion of Cincinnati, introducing a new logo and brand at the same time. This change allows us to concentrate more fully on helping people who are impacted by spina bifida in this region.

The development of the shunt in the 1950’s, along with advanced surgical procedures and diagnostic tools, dramatically increased both the life span and quality of life for individuals born with spina bifida. Passionate professionals and families have continued to advocate for quality care in multi-disciplinary clinics to assure healthy outcomes for their children. As the children of the 1970’s have matured into adults, the need for specialized healthcare continues, in order to preserve function and minimize the affects of aging with this complicated disability.

This organization has a long history of parent/professional partnership and is committed to improving outcomes for adults and children with spina bifida. The SBCC continues to have dedicated parents, professionals and individuals with SB participate at all levels in the organization and be advocates for the next generation.