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Fighting for Finn

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I realized tonight that I haven't written in a while. Mostly, we've been busy, but also there hasn't been a whole lot to say. We've settled into a sort of "normal" that will never be most people's version, but it's ours. We aren't completely confined by Finn's condition but we are never going to be unaffected either. So we just live and love and enjoy every moment of this complex little life we've been given.

The irony is not lost on me that I write tonight in celebration of ONE YEAR officially HOME-HOME, from a hotel room... in Rochester. I mean of course that would be how this shakes out. Last year, October 24th, 2017 was the first night Finn slept in his own crib in over 200 days. I remember it so vividly. Some days, on the hardest days, I think of how terrible this life is. But then I stop myself and I think back to the happiness I possessed that day. My family was finally together at our house the way it should be. Finn was on 24 hou…