Tag Archives: Spinal Muscular Atrophy

Philly Mayer’s story made A Thousand More one of our most powerful workshop projects to date. The short film documents his family’s determination to give their son a whole and vital life after Philly was diagnosed with Spinal Muscular Atrophy, a genetic disease that leaves the spine underdeveloped. Philly is still going strong and you [...]

Friends of Philly is holding its Annual Golf Outing on Saturday, September 8 in Rockaway, New York. Come to golf, or if you’re not a golfer, attend the luncheon or sponsor a hole. Friends of Philly Fund is a charitable organization committed to lifting some of the financial and emotional burdens on families who care [...]