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Yesterday, I shared this link on my Facebook page. It's a short ten-minute video that follows the same rockstar crew that saved our daughter's life when she was born.Like Hadley, our kiddo was born with Tetralogy of Fallot plus an atrial septal defect. She's had two heart surgeries so far, one at fifteen days old and another at six months. She had a heart failure scare last year that turned out to be completely (and blessedly!) okay. She even seemed to enjoy the Holter monitor adventure she had during all the testing.Kiddo is four years old now and will have more surgeries in the future, but right now, she's happy and healthy. Like Hadley, she doesn't let anything stop her from enjoying life--not her heart defects or her autism.So. Anywho. If you're interested in what happens in a world class CVICU, this video from Texas Children's is a great way to find out. The heart center there is one of the best in the world. The research and treatments they're pioneering are unparalleled. Last year, Dr. Fraser (kiddo's surgeon) fixed a little girl who was born with her heart outside her body.The fetal heart crew fixed a baby with HLHS in utero recently. It's amazing what doctors can do these days!

Thanks for sharing you and your amazing daughters story. Like you I have an amazing son in my life who was born at 36 weeks of life and stayed in the NICU for the first two months of his life, luckily there were no physical issues but there was slow mental developments in his life. As of today he is a happy thriving 9 year old boy who gives his mom the fits. Thanks for sharing your stories and life experiences

Sharon Fisher

5/6/2014 12:30:43 pm

Our extended family lost a baby over 40 years ago who had cardiac anomalies because the many techniques used today were not deve,oped yet. About 25 years ago we were priveliged to receive into our home a foster child who was born with tetrology of falliot. Back then they were able to do surgery on her just after birth and then neededttto do more a short time later. When we got her she was being sent home to die because of all the complications of her situation. No one told us that. So our plan development had nothing in it about dyinh, only our methodology for bringing her along. Six months later we turned her over to her adoptive parents as a walking, babbling, playful 1year old. We were able to follow her for another 2years. Last heard she was continuing to progress and was close to a normal child. She had at least one more surgery after she left our home. I thank God every day for the gifted surgeons who have repeatedly worked to not only save her life but improve it every time they were needed.