Monday, June 21, 2010

Ok I know no excuses, I have neglected my blog here lately.I have lots to catch up on so here goes....

Nick has recently started taking Cayston and he absolutely loves it. I as well as he can tell A huge difference

so we are really excited about that. The only thing about the cayston is that he has to take it 3 times a day,But its worth it. After fighting with the insurance company for what seems like forever he also got the hypertonic saline approved and is back on that now which is amazing and really helps him a lot.

Last week I had A much needed girls day, It was SO nice and A perfect day at the beach. We were there for about A hour and the lifeguards ran everyone out of the water thanks to the sharks making A appearance, I was freaking out.It was nice though to spend the day with my little sister and catch up with my bestie.

This past Saturday was my birthday and we celebrated by heading out for the night. We went to somewhere called harmonious monks, It was tons of fun.It is A restaurant and all the wait staff get up and sing and they give everyone tambourines... It was just a really good time.

Nick and I leave Thursday for Vacation and Sunny shores sea camp.I am so excited to meet all the new family's and spend time catching up with everyone from last year. This place is simply amazing and i wish that every CF family would have the chance to go... So I am off until we get back from vacation. Yall have A great weekend... Cant wait to blog about camp... XOXO

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Meet the Wife

My name is Amanda and my husband Nick has Cystic Fibrosis.We have been together for 9 years and have one small furbaby named Jag.I love all things southern and have A weakness for antiques. I am A DIY kinda gal and love A challenge.I am so greatful to have someone as special as Nick in my life. He has truly turned my world upside down and showed me the meaning of life.I started this blog in hopes that it would help me in my every day feelings and struggles as A CF wife.Along the way I can only hope that our story helps other wives or couples that are effected by CF and educate those who dont know what it is.

Meet Nick-Living with CF

Nick is 26 years old and has Cystic Fibrosis. He is A sports fanatic but is A Gator boy at heart.He continues to beat the odds every day and refuses to give up in his fight to beat this monster of A disease.Nick is in the process of getting his lung function up to avoid being listed for A double lung transplant.He is A fighter and always seems to amaze me. Nick is always optimistic and always seems to find the good in A situation. He is wonderfully made and forever mine.

My Bucket List

1.Invite A less fortunate over for Thanksgiving Dinner

2. Take A photography Class

3.Convince Nick to get A pedicure

4.Get A full body massage

5.Let my light shine more

6.Have A romantic dinner on A yacht with NIck

XX 7.Watch A sunset with Nick

XX 8.Say sorry to people that I have hurt

XX 9.Stop worrying so much and just LIVE LIFE

10.Read the Bible all the way through

XX 11.Act my age

12.Take my brother and sister on A shopping spree

13.Own all of the Nicholas Sparks books

14.Go to Hollywood California

15.Have A picnic in the park

XX16.Save lots of money for A new house

17.Hope that someone throws me A suprise birthday party with all the ones that I love there

XX 18.Buy A hammock

19.Get all my wedding pictures into A photo album

20.Get Nick to go on A cruise with me

21.Take A vacation with just my mom and I

22.Help build A house with Habitat for Hummanity

XX23.Learn to cook

24.Write A letter to my parents and tell them how I have ever felt about things in my life... JUST LET IT ALL OUT