Category archive: ALS Related

It’s been longer than I would like since my last post. I used to feel panic coming up on a week without blogging. This has been something helpful to me in dealing with ALS that I don’t want to lose. I try to not worry myself about it. If it’s stressing me, that’s no good….

I’ve been dealing with quite a bit lately, a lot having to do with ALS and some issues totally separate. When you have ALS, it can consume your life with symptoms, adaptions, planning ahead, money issues. The list is endless. At the same time life is still happening outside of ALS and even a healthy person’s life…

The past few blogs have been progressively difficult. After deleting several long drafts I’ve decided to just sit, write and publish. I hope it comes together enough to be worth reading. This used to be more like a public journal of my personal experiences and feelings while dealing with ALS. The stem cell surgery changed…

It’s hard to believe it’s already December! My surgery already seems so long ago. Before surgery the only holiday I could even think of at all was Thanksgiving. Actually, it was hard to think of anything other than the surgery itself, especially after the date was set. So needless to say, as I have been…

Alright, another week post surgery and I’m feeling so much better than last week’s post. I have much more range of motion in my neck. Even if I do something that aggravates it, the pain is much less intense and only lasts a short time. It’s still a little difficult moving upper body forward and back…

Here I am over two weeks out of stem cell surgery after being so unsure for seemingly a very long time if I would make it all the way to the OR. I did and I’m so grateful! Yes, I still have ALS but I feel like a warrior that was slipped an extra weapon that my comrades…

Hello everyone! It’s strange being online. I’ve taken a glance and been told I have had many well wishes. I planned to stay offline while focusing on recovery. I plan to still get back to everyone personally but right now I just want everyone to know I appreciate you very much. I know the burning desire and even…

The time has come. In approximately twelve hours I’ll be having stem cells injected into my spinal cord. I haven’t written much lately because I’ve been preparing. I want to say thank you to everyone who has sent positive messages to me. It has really meant a lot. I apologize if you didn’t get a…

I finally got the news I’ve been waiting for. All the months of testing, waiting and hoping that I’ve been posting about has resulted in a date set for stem cell surgery at the end of October. Surgery for the Phase II, Open-label, Dose Escalation and Safety Study of Human Spinal Cord Derived Neural Stem Cell…

He finally did it, Two beds out of one. I told you in my last blog about a family giving us their loved one’s Tempur-Pedic bed. It is a king size bed and it is wonderful. It came with two adjustable bases and two remotes and the king size mattress. Tony said they told him he could…