MY STORY WITH ALZHEIMER'S

Thursday, May 1, 2014

do these

DO THESE
it doesnt really matter how old you are
you should have these things done
dont wait until its to late
then
it becomes harder and more expensive to take care of things
yesterday i went to the second annual alzheimers symposium
in temple texas
its the one that i gave a presentation to on my story with
possible alzheimers disease last year
this years focus was on the caregivers

the first presentation was given by an elder lawyer
his first topic was guardianship
you dont want to have to do this
as its expensive and the control of your or your family member is
under the control of the court system

he said avoid this if possible
the best way is to be prepared
by having all the forms and documents mentioned below
done correctly
and there will be no guardianship
you dont want some lawyer or judge having to ok checks for
you or our loved one

the younger you do all of this the better
one speaker a bioethicist from california is the caregiver for
her brother who was in a car accident and now has a head injury

without the paperwork being done ahead of time
a guardianship may have to be done

if you do all this right he said then you get to determine guardianship
do a medical power of attorney or power of attorney for health care
put one person in charge with alternative persons if that one is not
capable or able

unless i piss my wife she off royally i have her as my medical power of
attorney with my sons listed as backup
my wife she and i have had discussions about what i dont want
side bar another speaker the bioethicist showed a graph of what
physicians dont not want done if their health is terminal like with
alzheimers or cancer etc
100% said no cpr-the survival rate for cpr in these situation is 0%
most said no cpr no ventilation no dialysis no surgery
no invasive testing no feeding tube no antibiotics no iv hydration
but >90% said they wanted pain medication
the two lowest was iv hydration and antibiotics at 60%

we must know something you guys dont

after practicing for >25 years i would say 100% no to all of those
things especially cpr and ventilation

if it happens to me as i get demented i plan to come back
and haunt the heck out of whoever did it to me

now im not talking about right now as im in great health
except for that alzheimers cloud thing hanging over my head
do a hippa release form
if you havent ever got pissed off when you try to get information
on a family member you may not understand how important this
one is

he suggested to not use the one from the hospital but get one
on line that covers things better

without one you may be shut out of your spouses medical
information if they become incapacitated
do a directive to physicians or living will
make sure this thing has things like no feeding tube no cpr no ventilation
no chemotherapy etc if you become incapacitated with a terminal disease
dont let others wonder what you would want

if things get complicated or if the doctors or hospitals screw up or
if another family members doesnt agree
this and the other forms are so important in overriding their objections
do an out of hospital dnr form
he suggested to google it and use a printed out form
without this if the emt paramedics come to your home or
to the nursing home etc they might do all that stuff that drs dont
want them to do to themselves
hopefully flashing that form in front of them will stop them

do a durable power of attorney
this gives someone and he recommended picking one person
with backups if that person is not able to do it
this gives them the right to do your financial and legal stuff when
you are incapacitated
and can prevent you from having to go to court for guardianship to
do your loved ones financial and business stuff

he recommended the durable power of attorney be updated every
few years as some banks etc will not recognize one eg that is
15 years old

he also suggested a living trust but not everyone agrees with
this recommendation
this one provides another layer of protection

some of these things can be done without an attorney
but some need their input

interesting was that the attorney i used for my will etc
was at the conference since she has become more involved
with elder law
since her dad had alzheimers disease and she learned
first hand what mistakes could be made and prevented

i plan to pull out all my documents this week and review them
i know that i plan to add more specific details to my directive
to physicians or living will
i dont have an out of hospital dnr
my hippa form is not a more involved one
i am not sure if i will do a living trust
i plan to seek other counsel on that one

be sure and use forms specific for your state as each states lawsmay be different

so dont wait to get all this done
wait to long
and
a local judge and lawyer will make the decisions for you
and
not your love ones

4 comments:

As having gone through this with my dad I would add a couple of other things as well. Make sure all stock accounts, insurance policies and financial instruments have a designated beneficiary verses leaving it just up to the will. This will help you avoid Probate Court and allow direct distribution of funds without the long delay of court.