Albright Hereditary Osteodystrophy

(Baltimore, MD) -- Kennedy Krieger Institute will join the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29. The purpose is to focus attention on the needs of patients and families affected by rare diseases.

"This is a global observance," said Peter L. Saltonstall, president and CEO of NORD. "Individuals and organizations around the world will all be sharing stories of how rare diseases affect their lives."

National news network to air story on families affected by this rare genetic condition

(Baltimore, MD) -Kennedy Krieger Institute announced the opening of a new clinic for the treatment and research of Albright hereditary osteodystrophy (AHO), a rare genetic disorder affecting the bones, skin and hormone-producing tissues. Under the direction of Dr. Emily Germain-Lee, the clinic will provide expert care to children and adults with the disorder, as well as conduct research to expand knowledge of AHO and identify new treatment options. Dr.