Erin Heasley injects a medication into a feeding tube for her son Riley Heasley, 8, as he watches TV in Longmont on Aug. 11, 2017. Riley has Pantothenate Kinase-Associated Neurodegeneration, a rare inherited neurological movement disorder, and is unable to walk or talk.
(Photo by Matthew Jonas/Times-Call)

Erin Heasley attaches a feeding tube to her son Riley Heasley, 8, in Longmont on Aug. 11, 2017. Riley has Pantothenate Kinase-Associated Neurodegeneration, a rare inherited neurological movement disorder, and is unable to walk or talk.
(Photo by Matthew Jonas/Times-Call)

Riley Heasley, 8, pauses while watching TV at his home in Longmont on Aug. 11, 2017. Riley has Pantothenate Kinase-Associated Neurodegeneration, a rare inherited neurological movement disorder, and is unable to walk or talk.
(Photo by Matthew Jonas/Times-Call)

Riley Heasley, 8, and his mother Erin Heasley share a laugh while he eats from a feeding tube at their home in Longmont on Aug. 11, 2017. Riley has Pantothenate Kinase-Associated Neurodegeneration, a rare inherited neurological movement disorder, and is unable to walk or talk.
(Photo by Matthew Jonas/Times-Call)

Erin Heasley changes her son Riley Heasley, 8, diaper at their home in Longmont on Aug. 11, 2017. Riley has Pantothenate Kinase-Associated Neurodegeneration, a rare inherited neurological movement disorder, and is unable to walk or talk.
(Photo by Matthew Jonas/Times-Call)