Privacy policy - Data sharing

This privacy notice tells you what to expect when MRC Unit for Lifelong Health and Ageing at UCL (LHA) collect information from you because you have applied or are applying for data sharing. LHA runs the MRC National Survey of Health and Development (NSHD), Southall and Brent Revisited (SABRE) and LINKAGE-Camden. Unless otherwise stated, the information in this notice applies to all three studies.

LHA is part of the University College London (UCL). UCL determines the ways in which any information which can personally identify you (your personal data) is held and used (UCL are the Data Controller).

How we collect data

LHA collects personal data about data sharing applicants through:

phoning or emailing

joining wiki / skylark / swift via the website

returning completed data applications and confidentiality forms

It also applies to the way we handle, process and store your information in:

sending mail and email

storing completed data application and confidentiality forms

providing a lay summary of the project on the website

providing metrics for external publication

Why do we collect data?

We collect the data in order to offer data sharing services and to carry out administrative work. From time-to-time we may email you to let you know about updates to our data sharing process.

If we do want to collect personally identifiable information, we will make it clear why we need to collect personal information and will explain what we intend to do with it.

Processing and consent

When we ask for personal data we will outline how we will use and manage it. We will not use this personal data for other purposes without asking your permission. We will not keep this information for longer than necessary. We will not use third parties to process your data and we will never sell your data to third parties.

Data location and security

We take data security very seriously and adhere fully to MRC and UCL data security policy and procedures. UCL is the Data Controller, and is responsible for ensuring that all data are securely stored, handled and used in accordance with the Data Protection Act 1998. UCL’s data policies and procedures for storing and handling NSHD data have been approved by the NHS Information Governance Framework and are equivalent to MRC policies and procedures.

Electronic is held on UCL secure servers. Data in paper form is held within secure filing cabinet and destroyed securely.

Your rights over your data

If you have any queries, you can write to us on: Freepost RSAB-CCGC-JCSL, MRC National Survey of Health and Development, MRC Unit for Lifelong Health and Ageing at UCL, 33 Bedford Place, London, WC1B 5JU, phone: 020 7670 5700 or email: MRCLHA.enquiries@ucl.ac.uk

Should you wish to make a subject access request to view your personal data held by us, you can write to us on: Freepost RSAB-CCGC-JCSL, MRC National Survey of Health and Development, MRC Unit for Lifelong Health and Ageing at UCL, 33 Bedford Place, London, WC1B 5JU, phone: 020 7670 5700 or email: MRCLHA.enquiries@ucl.ac.uk

Should you wish to withdraw permission for use of your data or to update the data we hold for you, you can write to us on: Freepost RSAB-CCGC-JCSL, MRC National Survey of Health and Development, MRC Unit for Lifelong Health and Ageing at UCL, 33 Bedford Place, London, WC1B 5JU, phone: 020 7670 5700 or email: MRCLHA.enquiries@ucl.ac.uk

Changes to this privacy notice

We keep our privacy notice under regular review. This privacy notice will be reviewed annually.