Would you share your health data?

“There is a fundamental willingness by
patients to share their data with us. In my experience, the closer the use of their data is tied
to a personal situation or condition, the more pronounced is their willingness to contribute to
medical progress.”
Tim M. Jäger
Global Head of Diagnostics
Information Solutions, Roche

With whom would people share their health data?

66

with their doctor

43

with their health plan or hospital

34

with state/public health agencies

31

with pharmaceutical companies

Transparency is key for patients

“Ultimately, patients want to contribute to
the bigger
picture, they want better care for their disease and new treatments. The resistance comes
from the use of data in a non-transparent way, in ways that weren’t made clear from the
beginning.”
Noga Leviner
Co-founder & CEO of
PicnicHealth

Patients should benefit

“Open exchange of data, including with
competitors, would empower all actors to tap into the significant potential for value creation.
Patients who make their data available should be able to benefit as a result. Not only directly
as individuals but also indirectly by ensuring that the data is used to create maximal quality
of life for patients.”
Nicole Gusset
Head of the patient
advocate
group SMA Switzerland

When it comes to healthcare, consumers are most concerned about:

Privacy

80

Data security

76

Cost of healthcare

73

Why we collect data

“It is a privilege to work with patient data. We
need to treat that data with respect, ensuring
protection of patient privacy
and prevention of unauthorised access. But
we should also be transparent with patients about our goals: Finding answers to the most
important scientific questions is the prime reason why we are collecting data.”
Mark Lee
Global Head for Personalised
Healthcare, Roche

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