I have two wonderful sons. Samuel is almost 17 and has severe haemophilia A. Lewis is 6 years old and until the age of 2 was completely normal, your average walking, running, talking toddler but at the age of 2 he started to degenerate physically and is now less mobile and able than a newborn baby. Mentally he is fine. He has had countless tests - all normal. This blog is about life with Lewis.

Lewis Jeynes's Fan Box

Wednesday, May 06, 2009

Update

Here is Lewis with a batch of post from Postpals! He loves receiving his Postpals mail!!
Here is Lew at the park with Ethan.
Here is Lew asleep on the garden swing after a busy day learning how to read with Mummy!
Here is Lew with his Postpals post again!
An Easter card from Postpals ...
Another Easter card from Postpals!
A lovely Easter card from our friends Angela, Len, Jenna, Ashley and Hannah in Wales!
A very cute Easter card from Postpals!
Some VERY cute eggs from Postpals - thank you!
At the park with Mummy.
Lewis picked a flower for me on his way up the drive from the school bus!
Lewis and Rachel.
Lewis and Samuel and the light up balloon!
Lewis and me at the park in very sunny Twickenham!
Lewis in Nanny's garden in Twickenham.

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

7th December 2006

7th December 2006

7th December 2006

7th December 2006

At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

January 2007

Lewis and his cousin Evie

February 2007

Lew and his cousin Anna

February 2007

12th December 2006

DRI Christmas Party - meeting Father Christmas!

30th December 2006

Lew in Ward 31, not very well

5th January 2007

Ward 31 - playing with my lovely balloons!

Lewis on Facebook!

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Sunday 27th April 2008

3rd September 2005

Page 7 Fella! Hendaye, France

ADVERTS - PLEASE READ!

You will notice there are adverts on Lewis' website. These adverts are often relevant to what is on Lewis' website at the time and you never know what you might discover! And by clicking on them, you can help The Lewis Jeynes Fund too!

Web Counter

June 2004

December 2004

25th December 2004

Lew and his cousin Millie - first Christmas!

March 2005

Lew on his Police bike!

June 2005

Watch out Wimbledon!

September 2005

At Ena's house in France

23rd September 2005

Lewis ready to go out!

Cards for sale

If you are looking for an interesting, unusual and original card design, but without the high cost, please do check out http://www.bbcardshome.co.uk/ for a great selection of unique card designs for any occasion and at only £1 a card plus p&p they really are a bargain!