tag:blogger.com,1999:blog-10853043.comments2016-12-13T08:24:11.062-08:00NF2 odysseyRebeccahttp://www.blogger.com/profile/11258414765006397310noreply@blogger.comBlogger636125tag:blogger.com,1999:blog-10853043.post-82398977768739614342016-12-13T08:24:11.062-08:002016-12-13T08:24:11.062-08:00Hi Rebecca!
My mother suffers from NF2 so I decide...Hi Rebecca!<br />My mother suffers from NF2 so I decided to base my Health exam on NF2. You&#39;re blog has helped me a ton, and just all around inspired me! You have made me hopeful. Keep doing what you&#39;re doing you&#39;re such a stunning person.<br /><br />Emily Wizhttps://www.blogger.com/profile/07245939739107627516noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-9608002863693619512016-11-19T08:42:15.891-08:002016-11-19T08:42:15.891-08:00How are you doing now?How are you doing now?Ayushi (Arohi)https://www.blogger.com/profile/04855279662347916089noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-86390460476009947292015-04-15T06:43:57.053-07:002015-04-15T06:43:57.053-07:00I came across this post via google sorry new to th...I came across this post via google sorry new to this Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-36556281640114769912015-04-15T06:06:00.625-07:002015-04-15T06:06:00.625-07:00Hi there my partner is undergoing this today as we...Hi there my partner is undergoing this today as we speak 3 tumors compressing his spinal cord I&#39;m currently 5 months pregnant and we were told he had nf2 2months ago all so much so fast u really are a insperation and just wondered how u are today as I seen these posts were a wile ago and hearing speach balance ect how were u? does it improve? All the best u can email me at zoeplumley@yahoo.co.uk many thanks Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-31969317296620684952014-03-26T02:36:34.128-07:002014-03-26T02:36:34.128-07:00Learn more about birthmark treatment in delhi, ple...Learn more about <a href="http://www.skindelhi.com/birthmark.html" rel="nofollow">birthmark treatment in delhi</a>, please visithttp://www.skindelhi.com/birthmark.html<br />John Dudleyhttps://www.blogger.com/profile/04414023777592108747noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-49192391178118769742014-03-04T11:59:46.939-08:002014-03-04T11:59:46.939-08:00By the way, at this time I have successfully endur...By the way, at this time I have successfully endured and recovered from 3 brain surgeries. :) My last one I ran a full marathon less than 5 months after undergoing the knife.Rebeccahttps://www.blogger.com/profile/11258414765006397310noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-49659391073333919842014-03-04T11:56:27.132-08:002014-03-04T11:56:27.132-08:00Hi Derrick and Anonymous! I would be happy to talk...Hi Derrick and Anonymous! I would be happy to talk to you about your upcoming surgeries as well as put you in contact with other patients I know both nationally and internationally. I have not blogged for awhile but I am the administrator on facebook for 4 different patient and family support groups. You can send me an email to bluediverbeck AT yahoo DOT comRebeccahttps://www.blogger.com/profile/11258414765006397310noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-82690888692581011032014-03-04T01:00:48.170-08:002014-03-04T01:00:48.170-08:00This comment has been removed by a blog administrator.John Dudleyhttps://www.blogger.com/profile/04414023777592108747noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-55690158458136956082013-11-24T03:11:53.046-08:002013-11-24T03:11:53.046-08:00Hi. She look great in that TNF you could tell her ...Hi. She look great in that TNF you could tell her :) KHhttps://www.blogger.com/profile/10963076744508491252noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-78340500681462795062013-06-09T10:28:26.949-07:002013-06-09T10:28:26.949-07:00hi Rebecca,
Thanks for your awesome blog. I&#39;v...hi Rebecca,<br />Thanks for your awesome blog. I&#39;ve been scanning the net looking for anyone that can help me with pain relief for NF2, and anyone that has experienced being on certain pain killers for a long time in their treatment for NF2. My little sister has NF2. She was diagnosed 3yrs ago but has had it for 5yrs (the 1st 2yrs the doctors misdiagnosed her). She has been on certain painkillers for so long and is now addicted to Morphine and Methadone in particular. She is also taking Pregabalin which is taken when you have had nerve damage due to surgery or trauma. I&#39;ve read that this drug can also have huge side effects if abruptly stopped. (These are only 2 of the 12 odd other medications she takes. I&#39;ve experienced her having side effects, withdrawal symptoms and toxic overloads. Sometimes I feel she mistakes her NF2 tumour pains with the pain that is caused by the side effects of these drugs. She wont stop taking them, and again, I feel this is her addiction talking and not her NF pain... There&#39;s so much more to her story and much more she gone thru physically, such a long story to explain .... But trying to stay brief, if you know of anyone that may have experienced something along these lines, I&#39;d appreciate any feedback so I can possibly find other solutions and support... thanks very much Rebecca for sharing your journey with everyone via this blog. You are a champion. Kindest Regards with all my blessings and love Vanessa Rarengawaka19https://www.blogger.com/profile/16768255570702707869noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-75726482549818628562013-05-28T23:52:42.845-07:002013-05-28T23:52:42.845-07:00watch pinoy tv show replays here CLICK HERE
or d...watch pinoy tv show replays here <a href="http://www.pinoyfan.org/" rel="nofollow">CLICK HERE</a> <br /><br />or download our android application here <a href="http://philippinestv.info/philippinetv.apk" rel="nofollow">Philipine TV Replays android app</a> <br /><br />or download our apple application here <a href="http://philippinestv.info/philippinetv.ipa" rel="nofollow">Philipine TV Replays ios app</a> <br /><br />HOW TO INSTALL PHILIPPINES TV ON IPHONE AND IPOD TOUCH? <a href="https://www.youtube.com/watch?v=QurbKh-qi2c" rel="nofollow">CLICK HERE</a> <br /><br />or visit <a href="http://philippinestv.info/" rel="nofollow">Android and Apple APPS</a><br /><br />LIKE US : <a href="https://www.facebook.com/socialvid.tv" rel="nofollow">Facebook</a> <br />Avon Lunahttps://www.blogger.com/profile/16005059833235774263noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-87480731361649574212013-02-21T02:31:29.024-08:002013-02-21T02:31:29.024-08:00Good one! I am really impressed. Keep up the good ...Good one! I am really impressed. Keep up the good work.fundraiser ideashttp://www.yourcitysampler.com/noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-52785320430066867712013-02-13T08:07:13.344-08:002013-02-13T08:07:13.344-08:00Mi suegra tiene esta enfermedad y lo reconoce pero...Mi suegra tiene esta enfermedad y lo reconoce pero muchas veces nos ha puesto en aprietos por no timarse las patillas tuvimos que traerla a vivir con nostros por todas las veces que ella cayo en un hospital por no tomarse las pastillas ella tiene 62 años pero esta entera fuerte y se le ve joven. Mi pregunta es si ya ella se esta tomando sus medicamentos como tiene que ser puede ella llevar una vida normal? Por fa necesito ayuda porque ella no hace nada por la vida y lo unico que causa son problemas con mi esposo porque siempre pone de excusa su enfermedad para no hacer nada. Solo quiero saber si es que yo estoy mal o ella solo esta poniendo de excusa su enfermedad.?<br /><a href="http://www.lamieleria.com/comprarpropoleo.htm" rel="nofollow"> Comprar propoleo </a>Debendrauk mahalikhttps://www.blogger.com/profile/09362224697189400496noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-84004178008148738002012-08-20T10:47:03.533-07:002012-08-20T10:47:03.533-07:00I just have the biggest urge to snuggle with her !...I just have the biggest urge to snuggle with her !!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-25792888175038913362012-08-12T22:16:30.908-07:002012-08-12T22:16:30.908-07:00Hi Rebecca, congratulations on your success and st...Hi Rebecca, congratulations on your success and strength! My brother has NF2 with chronic sciatic pain, and I stumbled upon your site from internet research. You validate that an active lifestyle is achievable and inspirational to others, best wishes to you. Alex Whitehttp://www.whitemysteryband.comnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-44110673693122895742012-07-12T04:56:02.473-07:002012-07-12T04:56:02.473-07:00Occupational therapy is a very quick growing field...Occupational therapy is a very quick growing field, and this is due to a variety of reasons. This has led more prospective students to become interested in employment opportunities in the field, and right at the top of that list is the profession of an occupational therapy. Visit <a href="http://occupationaltherapyschoolsite.com" rel="nofollow">Great Site</a> for more info.leehuckhttps://www.blogger.com/profile/01463620105362738578noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-23836759963911759642012-07-10T19:54:20.627-07:002012-07-10T19:54:20.627-07:00I was recently DX with NF2 and I am actually scare...I was recently DX with NF2 and I am actually scared to see what the specialist has to say! But I am glad that I cam across this page! Good Luck! PrayersAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-2708530556357225902012-07-03T18:13:49.467-07:002012-07-03T18:13:49.467-07:00It has been awhile since I have written but for an...It has been awhile since I have written but for anybody wondering, YES I am on the propolis again. I kind of got off track with 2 surgeries, Kilimanjaro in between, and the marathon last fall. But this spring I restarted to give it another try. Hopefully my scans in August will not show tumor growth warranting another surgery. Yay for HOPE! :)Rebeccahttps://www.blogger.com/profile/11258414765006397310noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-75893179939363722962011-12-12T11:45:28.152-08:002011-12-12T11:45:28.152-08:00Dear Rebecca:
Congratulations on your first &quot...Dear Rebecca:<br /><br />Congratulations on your first &quot;sub 5 hours&quot; marathon! Not only resveratrol but also Bio 30 would increase your stamina (endurance), because both block the oncogenic kinase PAK1, and activate the tumor suppressive kinase AMPK, and eventually extend your lifespan! <br /><br />Warmest regards, Hiroshi MarutaHiroshihttp://charlie19420.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-48220641699784600462011-11-24T06:32:01.409-08:002011-11-24T06:32:01.409-08:00Thank you. your post very well. Indeed, propolis i...Thank you. your post very well. Indeed, propolis is very beneficial to our health. I have been using propolis for 3 months and there is one benefit of ulcer disease. Not only that propolis increases our immune systempropolishttp://www.mninetwork.comnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-16335042177895655282011-10-05T06:59:26.624-07:002011-10-05T06:59:26.624-07:00Hello there, we just stumbled on your blog, my par...Hello there, we just stumbled on your blog, my partner Joanne, also has NF2 and was diagnosed in 1990 to date she has had over 30 operations including 6 brain ops, last one was 3 weeks ago, she is now completely deaf and has facial paralysis to the left side and no balance and of course several other problems however, she still wakes up with a smile everyday, must be my charm and wit, you take care and we wish you luck for the future, Roger and Joanne.imbossokhttps://www.blogger.com/profile/08728333489106699823noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-7207726120341390312011-09-28T12:35:40.496-07:002011-09-28T12:35:40.496-07:00Love all of the pics! Can&#39;t believe it&#39;s ...Love all of the pics! Can&#39;t believe it&#39;s going on 3 weeks since the wedding. It&#39;s still so fresh in my mind. What a beautiful day! Thanks again for being here to share in the festivities. Love you!Sharilynnoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-42972547059005278222011-09-22T12:41:20.048-07:002011-09-22T12:41:20.048-07:00Hello,
I have a question about your blog. Please ...Hello,<br />I have a question about your blog. Please email me!<br />Thanks,<br />DavidDAVID HAAShttps://www.blogger.com/profile/08616835462804462281noreply@blogger.comtag:blogger.com,1999:blog-10853043.post-1328580869638220792011-08-29T05:45:20.867-07:002011-08-29T05:45:20.867-07:00It works or not?It works or not?Tommynoreply@blogger.comtag:blogger.com,1999:blog-10853043.post-87838729714505569042011-08-24T00:34:44.551-07:002011-08-24T00:34:44.551-07:00I purchased the same shoes this spring and used th...I purchased the same shoes this spring and used them in a 5K. I have been struggling to &quot;find time&quot; to get back at it. Your posts help! Push girl, push.Anonymousnoreply@blogger.com