tag:blogger.com,1999:blog-22576999.post3813828619837384172..comments2015-03-31T16:31:43.542-04:00Comments on Learning to Live With ME/CFS: Cabin FeverSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-22576999.post-59171824763674357762008-11-10T17:10:00.000-05:002008-11-10T17:10:00.000-05:00Interesting to know.Interesting to know.Selinahttp://alvieinsurance.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-79789036156321248952008-03-22T21:50:00.000-04:002008-03-22T21:50:00.000-04:00Hi Sue, I would love to hear what has helped you h...Hi Sue, I would love to hear what has helped you have a good two months! I've been using gamma globulin, and that has helped me, but I still have to micro-manage each and every day. So all hints as to what you have found would be helpful. I am about to take a month long trip for the first time in seven years, and am slightly terrified about my health, so am looking for anything I can do. Thanks, SandraSandrahttp://www.blogger.com/profile/16959720812139509104noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-45050642541284148272008-03-02T09:08:00.000-05:002008-03-02T09:08:00.000-05:00Diane - Thanks for your note. Jamie is doing bett...Diane - <BR/><BR/>Thanks for your note. Jamie is doing better - he was even able to attend his middle school semi-formal dance Friday night! And you're right - the viruses going around this winter are really bad. I've heard from so many people that they or their kids (without CFS!) were sick for 2-3 weeks with this fever/cough thing. Craig has missed two weeks of school with it but seems to have finally shaken it.<BR/><BR/>Oh, and reviewing kids' books is fun! I really enjoy it and am looking for more opportunities to do it.<BR/><BR/>SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-27286821614083495982008-03-02T09:05:00.000-05:002008-03-02T09:05:00.000-05:00S - Our hamster is doing fine so far, but the vet ...S - <BR/><BR/>Our hamster is doing fine so far, but the vet thinks the growth on his cheek is probably cancer. It's not getting bigger right now, and he's acting normally, so we're hoping he'll be OK.<BR/><BR/>I'm so sorry to hear about your son. That's a very difficult time to go through - we've been there (twice). Be sure to take a look at the school resources I listed on my February 11 blog. Homeschooling is just one option for sick kids; there are many others.<BR/><BR/>Also, if you suspect your son has CFS, he should be evaluated for orthostatic intolerance/hypotension. Treating OI almost always makes a huge improvement in stamina and all symptoms in kids with CFS. It's done wonders for my two boys and allowed them both to attend school regularly.<BR/><BR/>Good luck and let me know how things go.<BR/><BR/>SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-51715888647414119442008-03-01T00:13:00.000-05:002008-03-01T00:13:00.000-05:00I hope Jamie is better now, there is something goi...I hope Jamie is better now, there is something going around this year (I know people always say that, BUT this year almost everyone I know either got a cold/flu thing or a family member did) Reviewing chldren's books sounds like such fun.Diane J Standifordhttp://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-71572130228138254582008-02-23T18:19:00.000-05:002008-02-23T18:19:00.000-05:00Thank you for bloggin how you are all doing better...Thank you for bloggin how you are all doing better. I'd been wondering if things were better. How is the gerbil?<BR/><BR/>I've been lucky. The Valcyte is working for me. Ive only had normal colds for over 5 months. No antibiotics for the first fall and winter in over 20 years. <BR/><BR/>My son is sick and Im concerned that he is showing signs of CFS. He is so bad we are considering homeschooling the rest of the year to get him well. We've done this before, so we know what we are up against.<BR/><BR/>I hope with all my heart that treatements and cures come to you, your sons, and all the other sufferers out there. If this diesase lets me go, Im not going to walk away and pretend it didn't happen.Shttp://www.blogger.com/profile/11607972672516229274noreply@blogger.com