Jef, I was serving this site and it is just what i was looking forI have had epilepsy almost my whole life After the mumbs or earinfection I got itI have .Thanks G-d , 7 childrenAs a fum jew there is a big problem of stigmatizing From this I suffered very much and now I'm getting more open about it. People should be educated. It is high time for thatGoldy

What do you want to talk about?By me the epilepsy is getting worse, becouse of the hormonal changes during the menopauseI find it very difficult to say to my friend that it is not going well with meAlso the stress I have every month to get my medicine does not help I was in Maccabee health fund when felt a seizure comming So I yelled and went to nurse All was o.k. and they took care of the problems with the medicineI do not wher you live, i live in Israel So every thing is more difficult heregoldy

QuoteOriginally posted by: goldyWhat do you want to talk about?By me the epilepsy is getting worse, becouse of the hormonal changes during the menopauseI find it very difficult to say to my friend that it is not going well with meAlso the stress I have every month to get my medicine does not help I was in Maccabee health fund when felt a seizure comming So I yelled and went to nurse All was o.k. and they took care of the problems with the medicineI do not wher you live, i live in Israel So every thing is more difficult heregoldy

I have had seizures[petite mal] from the age of 7 [about]Then after my first child i got grand mal seizuresI wrote in the "Horizon" about epilepsy under the name Sifra Salomon. The october issueAlso my story was told in the Chabad Newsletter It is not that I want to be famous It is that people especially the jewish people think very strange about epilepsyThat is what I would like see to change. That will not be 1.2.3 But if I do nothing, nothing will change for sureI read in the sefer Pardes Rimon" from Rabbi Teitler and he is quoting from the Eben Ezrathat a person should not get married to some one of the house of lepers and the house of epilepticsThat hit me and since that time I have the urge to give more information about epilepsynot knowing , makes people fear, causing those strange mythes I hope I'm clearAbout cancer one can talk, but not about epilepsy I have had epilepsy for about 50 years Oi wee half a century. Time flyesgoldy

I would like to know if other people living in Israel have problems getting there medicationEvery monthe there is an other story and sometimes,with the Zarontin, it is not availableI'm writing emails and letters and would like to know how others are handling a problem like thisgoldy

Noname,What kind of seizures did you have. There are many kinds from the big grand mal seizure till a little shock in part of your bodyYou should learn a lot about epilepsy. You can live a normal live and have children with the right medicationIf you have any questions feel free to write againgoldy

Going 2 years in between seizures is normal. I had the same thing when i first got epilepsy at 2. I had a grand mal seizure at 2,4,6,8,10 and 12 and then they changed from grand mals to simple or complex partial seizures.

The main problem i had with epilepsy was , of course, driving, that is until i had my brain surgery, and finding a wife. While i was dating i always told my date about my epilepsy immediately, because i did not want to spend money and time dating just to find out later when she finds out about my epilepsy that they are scared or not interested.

Is that the reason that one has to be 2 years seizure-free in order to get a drivers licence?I used to have once a yeare a seizure. Instead of choosing to go on more heavy medication, I took it as it came, once a year. Hormonal changes do play a role with epilepsy. I do not know if "noname" is a male or female. pregnancy and the montly periods could couse also seizure. Jef you still have the brain damage or they took the damage out. Complex partial seizures do you loose consciousness? Sorry for asking so many questionsWe should be happy. It is Adar close to Purim When Adar begins the simcha[happiness increasesSo don't forget to be happygoldy

i am a female and not yet married. i do not have my driver's liscense because i never got around to taking the test because after my first seizure i had the dr told me to wait a year and then i just never did it and now i suppose i should wait a little more. so what is your opinion on getting preg being on meds. i am on a low dosage because it only happened twice.

so the first time i got a seizure (at 18) i went onto meds for a year plus 2 months and nothing happened during that time so i went off with my doctor's permission. then 6 months after being off it -out of the blue -i had a grand mal during the night.

so i do please g-d plan on marrying soon and i pray that all will go well and be well. just trying to see how people with epilepsy (which i suppose that i what i have now) do about marriage.

NonameMazal tovI have bli ayen hara 7 wonderfull children. There is no reason for you not to have such a blessingThere is medication which is safe to use during pregnancy. I mean safe for the babyIt would be a good idea to get yourself adjusted to that kind of medication. Most of the time one needs more medication during pregnancy, by me it was the other way around. So after the baby was born I had a very hard time with the hormonal changeWhen I'm stressed ,upset, or do not eat[low sugar] or drink well I'm prone to have a seizureOnce I came in a status [on pesach] after not drinking enough. Personally, I think seizures do not come out of the blue. There is always something that triggers itbe wellgoldy

and another thing. i agree with you on the fact that the seizures dont come out of the blue. but they seem out of the blue until you think for a second what could have triggered it and then u work on improving that specific thing.

I'm on Zarontin 500 mg a day,lamictal 250 mg a day and ospolot 100 mg a dayBeside that I take taurin 4000 mg and it did cut the regual medicine in almost halfMy doctor was not so happy about it, but he made a note of it. Taurin is an amino acidI know Zarontin is not tested for pregnancies. During my pregnancies I took phenoberbital.If you live in Israel there is a specialist in Tel Aviv who does this kind of treatmentYou can always ask. That why this site is here. So feel freefeel wellgoldy

Hi, I'm probably an unusual case. I had partial seizures about every 2 months since I was 11 (I think, I didn't realize what they were). I had my first grand mal when I was 17, which was when I found out I was epileptic!

I was on Dilantin and Tegretol, both of which I was found to be allergic to (BRIGHT red rash). After that, I got scared I'd be on meds the rest of my life, plus I read the label and scared myself silly. So I took myself off entirely (they had prescribed Neurontin, but I figured I'd likely be allergic to that too). The doctors weren't happy, the school wasn't happy- but I had another few grand mals, probably every 6 months or so, for 2 years, and then B"H have been seizure free since then.

I'm B"H happily married now! I later realized that lack of sleep and not eating properly (typical high school behavior) was a major part of the trigger for my seizures. For 2 years I had to be VERY careful about either eating really well or sleeping really well (at least 8 hours) to feel fine. Now, B"H BA"H I am seizure free for a really long time, not on meds, and if I'm moderately careful about my eating and sleeping patterns, I'm fine.

I also have a very big Bracha that I ALWAYS get an aura at least 15 seconds before a seizure- enough time to lie down, or pull over if Ch"V I was driving. Still, I'm glad I'm not facing it on a regular basis!

I sometimes wonder if my EEG would still come out abnormal, but I don't want to go to a neurologist, they'll probably try to put me back on meds.

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