Orange County Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at orangecountychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

News and Information

Get to Know Your Coordinator

Why I volunteer- Yvonne DiCarlo Clemens"So, while I'm waiting for my miracle pill, I want to do all I can to help those in need of transplants. I'm getting involved with the PKD Foundation to increase awareness, education, support, advocacy and fund raising so that dialysis will become a thing of the past. I do this for myself, my children, my grandchildren, and for you".

PKD Foundation News and Announcements

PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!

San Francisco Rock ‘n’ Roll Half Marathon

Sunday, March 29, 2015

Take a VIP running tour of the Golden Gate City at this year’s San Francisco Rock ‘n’ Roll Half Marathon to bring hope to those affected by PKD.Click herefor more information.

Local Events and Meetings

Chapter Meetings

What's New in PKD: A Day of Learning

Saturday, March 28, 2015 8 a.m. - 1 p.m.

PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss topics that are important to PKD patients. This year, we will be focusing on complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Dr. Rastogi will be joining us to speak for the first half hour of the event!

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.

Blog

Discussion Forums

PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end PKD. Save the time and hassle of selling your vehicle yourself and support the Foundation's mission. Learn more about the PKD Foundation's vehicle donation program at pkdcure.org/donate/vehicle-donation or call 855.9PKD.CAR (855.975.3227).

PKD Foundation

You Shop, Amazon Gives Amazon.com just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company's website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation's mission to find treatments and a cure for PKD. Learn more at smile.amazon.com