is the story of one family's journey through life with a very special child with Down syndrome and a complicated medical history and how we have learned to DANCE through the tulips.

Saturday, June 20, 2009

PICS!

Our special friend Kaitlyn reads to Chloe and Sadie. Chloe LOVES books!!!! And so does her big sister!That's what you call "plum tuckered out"!!!First bath in the BIG tub now that she can sit up on her own!!!!! Such an exciting milestone! Her sister Sadie shared the bath with her. They had a great time together.So happy after her bath! Fresh clean baby! Xander and Chloe having some playtime. She sure LOVES her brother!!!!!!!!!!!!! Indiana Chloe! :)

Pray for Dillon

About Me

I am a 44-year-old woman whose life changed when I learned my third child would be born with Down syndrome. Right away I knew that our lives would be changed forever, I just never in my wildest dreams could have imagined it would be like this. This is my family's story.
In the months preceding the start of this blog, starting when Chloe was just 6 days old, she had 7 hospitalizations, 1 open-heart surgery, and 1 g-tube surgery. She was the youngest child at our hospital to ever be put on CPAP at home for Severe Obstructive Sleep Apnea. She had a TINY opening to her airway and therefore frequently suffered from upper respiratory incidents. Chloe also had GERD and was being considered for a Nissen Fundoplication. But she is an AMAZING fighter and the happiest girlI've ever known!