FTD strikes earlier in life than other dementias, which can devastate family relationships, finances and even the health of caregivers. This section will help you manage the challenges of an FTD diagnosis.

Food for Thought

Although frontotemporal degeneration (FTD) is a devastating disease for all whose lives it touches, it remains far too little known and poorly understood. If you would like to help to change that, AFTD’s Food for Thought (FFT) campaign is for you.

Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the world host bake sales, restaurant benefit nights, happy hours and much more.

FFT event hosts tell their stories, making people personally aware of FTD, while serving some food and raising funds to support AFTD’s mission. Hosts can hold any type of event—even an online “virtual” one—as long as food and FTD education are involved.

Hungry to Make a Difference?

If you’re ready to take a bite out of FTD, we have the resources to make it happen. Simply follow the steps below and you’ll be well on your way to putting your state on the map and aid in nationwide resolved against FTD!

Host Toolkit: first, a guide, from start to finish, on how to be a FFT host.

Contact Form: next, complete this to be connected with a trained, volunteer FFT Liaison for one-on-one support throughout the campaign.

Public FFT Events:

Host: Sharon DeFelicesDate: 9/23/2018Location: New Hope, PAEvent: I will be offering quarts of soup for pre-sale from September 23 – October 7. Pick up of ordered soups will be Friday November 2 – Sunday November 4, 2018. Location has not been decided but will be in the New Hope, PA area. Soup ingredients and preparation will all be covered and all sale proceeds will be donated to AFTD.Contact: sdefelices@gmail.com

Host: Chrissy PikosDate: 9/23/2018Location: Home of Chrissy Pikos (132 Rutledge Road, Wethersfield, CT 06109)Event: I have a Traveling Vineyard consultant coming to sell wine. She pairs them with food so guests can enjoy the wine and food. 20% of sales will be donated to AFTD.Contact: greekdonut@cox.net

Host: Jennifer MorabitoDate: 9/23/2018Location: Aunt’s house (Dayton, MD)Event: We are having our fourth year of Cindy’s Cakes! We will be taking orders in advance for mini-sized Hot Milk Cakes, which we will bake and deliver on September 23rd. Regular cakes are $4 each, gluten-free are $5 each, and we will ship! As all supplies are being donated, the gross profits are all being given directly to AFTD’s Food For Thought Campaign.Contact: jcmorabito@yahoo.com

Host: Cindy O’DellDate: 9/23/2018Location: OnlineEvent: Cindy will be taking orders for FTD ball caps until 9/23. After that campaign ends, she will be taking orders for matching t-shirts.Contact: cindyo13@aol.com

Host: Susie BrooksDate: 9/27/2018Location: The Arbors at Shelburne (687 Harbor Road, Shelburne, VT 05482)Event: The Arbors will be providing a recipe a day for the entire week to visitors to our community as well as on our Facebook page. People will be able to purchase (donate) to have these special recipe cards for themselves.Contact: sbrooks@benchmarkquality.com

Host: Karine AdalianDate: 9/27/2018Location: Grapes and Hops (454 E Main Street, Ventura, CA 93001)Event: Kelly’s Lot and Friends will be performing acoustic originals and covers. The restaurant will be donating the food. Tickets will be $50 for the gourmet cheeses, salads, meats, and desserts. A glass of white, red or sparkling wine will be included. If people come for the performance, the restaurant owner very generously will donation 25% of the wine and beer people order.Contact: k.adalian@att.net

Host: Steph McLainDate: 9/27/2018Location: The Yogurt Experience (200 University Blvd., Suite 230, Round Rock)Event: Present this flyer and 20% of sale during the fundraiser date and time will be donated to AFTD.Contact: fibrorat@live.com

Host: Susan ButterfieldDate: 9/28/2018Location: Premier Meat Pies (1001 Alaskan Way, Pier 54 Seattle, WA 98104)Event: The restaurant will be hosting this event as their Grand Opening. They will have a soft opening in the weeks prior to our event. They will provide appetizers and drinks. The Seattle area AFTD community will be invited as well as other members of the community for this event. A donation page will be create and the restaurant will be accepting donations directly during this event.Contact: suselenae@gmail.com

Host: Elizabeth SorieroDate: 09/28/2018Location: Elizabeth’s house (Westfield, NJ)Event: I am serving food and my stepmother’s (who has FTD) brownies and BeautyCounter company is coming to sell beauty and skin care products. They are a company who use the most natural and healthy ingredients, and they campaign for more transparency in personal care item ingredients to promote wellness in the industry. The BeautyCounter rep is donating all of her commission to AFTD, as well as creating a raffle item to create more donations. We are also putting together care baskets of beauty and skin care products to deliver to FTD patients in local memory care facilities.Contact: elizabethsoriero@hotmail.com

Host: Terry PontiousDate: 9/29/2018Location: Parma, OHEvent: This event will be a pasta dinner. There will be basket raffles as well.Contact: angels9762@aol.com

Host: Shana NissenDate: 9/29/2018Location: The Loft Coffee Shop (6260 US Hwy 281 N, Spring Branch, TX 78070)Event: We will be offering tasty desserts and coffee for a donation. Hosted at a lovely, cozy coffee house in Spring Branch. This will be a time for learning more about FTD, its effects on the diagnosed and those that love them. Planning on having a guest speaker from the UT Health Sciences Neuropsychology, Dementia Care Department.Contact: shana_nissen@yahoo.com

Host: Valerie MatneyDate: 9/29/2018Location: Compund CrossFit (905 Live Oak Drive, Chesapeake, VA 23320)Event: After the Saturday workout, I will be offering frittatas and baked protein oatmeal that I make for sale to those attending the workout, and anyone else who may be interested 100% of sales will be donated to The AFTD Food for Thought campaign.Contact: vjmatney@gmail.com

Host: Sarah DeLucaDate: 9/30/2018Location: Rusted Route Farms (5739 State Highway W, Jackson, MO)Event: Event in my Dad’s memory that includes bands, activities, and food trucks. We have sponsors to help with event, but minimum donation of $10 for adults and $5 for kids at the door.Contact: sedeluca01@yahoo.com

Host: Jennifer MorabitoDate: 10/01/2018Location: OnlineEvent: This is an online Pampered Chef fundraising show. It will be open to anyone who is interested in ordering from October 1st – 7th. Orders will all be shipped directly to folks, and includes all 48 continuous United States. A percentage of the total sales will be donated directly to AFTD.Contact: jcmorabito@yahoo.com

Host: Donna WertDate: 10/2/2018Location: Joy’s House Adult Daycare (2028 E. Broad Ripple Avenue, Indianapolis)Event: This event is for the Indiana FTD Caregiver Support Group. Pitch-In meal and informational meeting for friends and other loved ones to join and learn.Contact: dwert@iupui.edu

Host: Jerry HornDate: 10/2/2018Location: Atlanta Bread Company (3680 Dauphin St, Mobile, AL)Event: Invitees are asked to RSVP at our special GroupRasie page at www.groupraise.com/events/68878. We must have 20 people RSVP or the event will be cancelled. The restaurant agrees to donate 15% of all receipts during our event time/date based on diners who identify themselves as having RSVP’d to our event. Invitees who are unable to attend will be given the opportunity to donate to AFTD.Contact: jerryhorn@bellsouth.net

Host: Chuck AnastasiaDate: 10/02/2018Location: Not Your Average Joe’s (Seekonk, MA)Event: This restaurant location will donate, directly to AFTD, 15% of food receipts from patrons who present our event certificate to their server, or indicate to their server that they are there to support AFTD through the Not Your Average Cause program.Contact: chuck.anastasia@gmail.com

Host: Lynda AresDate: 10/03/2018Location: Outback Steakhouse (Hwy 72, Huntsville, AL)Event: There will be a table set up to give donations. The restaurant will be giving gift cards for drawings.Contact: Lyndares1962@att.net

Host: Eliana FischelDate: 10/04/2018Location: Home of Eliana Fischel and Eric Abbott.Event: We will host a dinner party. There will be a minimum donation of $20 to attend. Eliana will tell her family’s FTD story and provide information about how people can get more involved. All proceeds of the event will go to AFTD.Contact: efischel@gmail.com

Host: Samantha MeadowsDate: 10/4/2018Location: Weill Cornell Medicine, Room TBDEvent: Caretakers and researchers will come together over dinner to bridge the gap between the research community and the patients effected by FTD. This event will give caretakers an opportunity to learn about some current research in the field and more importantly, it will help scientists learn about FTD from the patient/caretaker perspective.Contact: smm2011@med.cornell.edu

Host: Lucy CarterDate: 10/4/2018Location: OnlineEvent: Porter Road Butcher will provide a percentage (to be determined) of their online sales to AFTD. The website and social media will promote the event with a link to the AFTD website.Contact: lcarter@kraftcpas.com

Host: Barbara LoewyDate: 10/04/2018Location: Green Goddess Natural Foods (2051 Saranac Ave, Lake Placid, NY 12946)Event: This will be an open house with refreshments and an information table about AFTD. I will speak briefly about my experiences and give some non-technical information about FTD.Contact: bmloewy@gmail.com

Host: Kayla BoehmerDate: 10/06/2018Location: St Henry Catholic Church (221 W Olive St., Marshalltown, IA 50158)Event: This event is a bake sale that will be held after each weekend mass (after 5pm on October 6 and after 8am and 10:30am on October 7).Contact: kayla_boehmer@hotmail.com

Host: Natalie AhotaeiloaDate: 10/6/2018Location: 9747 S 1600 W. South Jordan, UT 84095Event: We are doing a Hawaiian plate sale fundraiser. We will be selling plates of Hawaiian food that consists of kalua pork, katsu chicken, teriyaki chicken, rice, and mac salad. All donations and money will go directly to AFTD to help with research, support, education, awareness, and advocacy.Contact: nataliedey@yahoo.com

Host: Kathy and Sara LaFoneDate: 10/6/2018Location: Nash Street Tavern (250 S Nash St, Hillsborough, NC 27278)Event: This event will be held in memory of Tim LaFone. The event will include raising FTD awareness with educational materials from AFTD, personal sharing about Tim and his FTD journey, live music from Radio Blue, and comfort foods. Donations to AFTD will be accepted.Contact: mirage.onyx@gmail.com

Host: Nanci AndersonDate: 10/09/2018Location: Olives Fresh Pizza (287 Water Street, Excelsior, MN 55331)Event: A separate section of the restaurant for the event will be reserved. It is open to the public. We will provide a pizza buffet however, beverages must be purchased. There will be tables set up with materials about FTD/AFTD. There will be donation baskets to give contributions on the tables. This event is being held on the same night as a FTD Support group. Many of the support group members will be joining us.Contact: nanci_anderson@mchsi.com

Host: Jennifer ZucatiDate: 10/11/2018Location: 777 N Crusey Street, Suite 101Event: We are going to have an open community event where we will have food, games, coloring for children, and just fun socializing.Contact: jennifer@linksprc.org

The Association for Frontotemporal Degeneration
Radnor Station Building 2, Suite 320
290 King of Prussia Road
Radnor, PA 19087