John T Farley to serve as representative at the National Down Syndrome Congress Convention

Recent participant in D.C. lobbying effort

John T. Farley (right) helps lead the 2013 STEP UP for Down Syndrome walk with Elvis tribute singer Vinny Girard.

John T. Farley recently spent a week in Washington at the National Down Syndrome Congress convention. As part of the convention, he spent a full day lobbying on Capitol Hill, meeting with Tennessee senators and congressmen to encourage their support of legislature that affects individuals with Down syndrome and other disabilities.

A few of the issues Farley spoke about included:

The ABLE Act (Achieving a Better Life Experience) which would allow individuals with disabilities the right to have savings above $2,000 without affecting other benefits.

Down Syndrome Research Funding: Requesting more funds be allotted within National Institution of Health to research medical conditions that are prominent with Trisomy 21.

Keeping all Students Safe Act: Banning the use of restraints and seclusion in public schools.

Five years ago, Farley began his run for the board of directors of the National Down Syndrome Congress. Each year the self advocates select one of their peers to represent them on the national board. Only one is voted in annually, and some years as many as 20 individuals run for this position. On July 21, 2012, they selected Farley as their representative. He will serve a three-year term with commitments and responsibilities to keep him very busy.

The 2013 NDSC convention will be in Denver, July 19-22. This is a great educational opportunity for young adults with disabilities, their parents, and educators. Join Farley and his family at the 41st convention. For more information go to ndsccenter.org.