The Pulmonary Hypertension Association’s History

From simple beginnings – four women who met around a kitchen table in Florida in 1991 – the Pulmonary Hypertension Association has evolved into a community of well over 10,000 pulmonary hypertension patients, caregivers, family members and medical professionals.

As we have grown, we have stayed true to our roots and the vision and ingenuity of our founders: We continue to work every day to end the isolation that PH patients face, and find a cure for pulmonary hypertension.

Our History

The Early Days (pre-1990)

In 1985, there were only 187 known patients in the U.S. with pulmonary hypertension. PH patient Dorothy Olson set out to find others with the disease and finally connected with three other patients in Florida. Together, they founded the first PH support group and what would eventually become the Pulmonary Hypertension Association. Read more

Founding Our Community (1990-1999)

In May 1990, the founders printed the first issue of Pathlightand sent the newsletter to all known patients and doctors who treated pulmonary hypertension. As the network of patients, caregivers and medical professionals grew, PHA evolved from a local support group in Florida to an organization with national reach. Read more

The Future of PHA

Our ultimate goal is to find a cure for pulmonary hypertension. We are empowered by the hope for that cure as we continue to build our community and provide more programs and services for those whose lives have been touched by PH.

Additional Information

In the Words of our Founders

“PHA’s history is driven by a commitment to succeed beyond our numbers. It is the continuing story of what patients, family members and medical professionals are able to do to change the history of a disease.” – Rino Aldrighetti, PHA’s president and first staff member

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.