... that level. since going on topamax i was always told that the levels could not me tested, i was used to having them done as i was on dilantin and epilim before topamax but to see so many people with kidney problems on a lower dose than me is concern it has never been mentioned. ... (26 replies)

... Hello to everyone!
I've been taking Tegratol for yeeaaaarrrsss...I have done no research, fearing the truth. Is my liver going to fall out? Does it work with pregnancy? I have read so much on seizures today (more than what doctors have ever told me due to them being short on time).
Note: I had petit mals, grand mal, and brain surgery - was cleared of drugs, had a... (5 replies)

... Thank you ShariLynn for your insights. I'm so glad that I've had responses already. I was hoping that i would. So, you've been on all those medicines at the same time and had 4, and pretty soon 5 healthy children? That's really great! One good thing is that I do take Folic Acid every day. I've been taking 4 mg for several months now instead of the recommended daily... (5 replies)

... Thank you Shelly for your info. It really helps me out. I too have done research on the drug. I haven't done too much since my doctor just brought it up last week to start trying Topamax, but I have done some research before I go in for my appt. tomorrow. Thanks for your help!
Mel (5 replies)

... In the last 3 weeks, I found out I am pregnant for the 5th time. turns out the topamax messes with birth control, so here we are once again. I am currently just under 14 weeks, and have yet to find out about any defects. ... (5 replies)

... Dear Vicky, Thank you so much for your reply. I am truly happy for your daughter and I wish her only the best in life. Just by your description I can tell that she is such a strong and determined person and you should be so proud of her.
I have been on Lamictal since the beginning of my seizures (2001) and out of all the meds that I have taken (Dilantin, Tegretol, and... (6 replies)

... Hello. I've been looking for a support site like this and I have to say that it is AWESOME! It's so comforting to know that I am not alone out there. I am 25 yrs old and I suffer from grand-mal seizures. Currently I am on Lamictal and Topamax. The seizures started in Oct on 2001 and I have had 10 to date. Honestly having the seizures is not a major concern for me, however I... (6 replies)

... First off CONGRATS LAURA, I too was taking 2 Aed'S while pregnant. I have been on Neurontin and Topamax for the last 16 yrs.. due to right temoral cranitomy to remove a brain tumor at which time I became epileptic. ... (13 replies)

... Hi Craig
Like you said, meds all effect different people in different ways and as everyone's epilepsy is different, one person's "wonder drug" will be another's nightmare. So I can't give you much more than my experiences with both of them.
Lamictal was the first drug my neuro tried me on (Dec 1998). He chose this drug because it is generally effective in controlling my... (2 replies)

... I take Topomax and really like it. It does control my seizures. But it has cut my appetite off so drastically I have dropped weight. A plus for me, but I wouldn't think it would be for a pregnant woman. I also go thru bouts of nauseusness. Lots of food taste really nasty now, so I have had to change the way I eat.
My Neuro had me research it on the internent before he... (5 replies)

... Welcome! Sorry to hear about everything you've been through. Just wanted to share my Topamax experience with you and encourage you to be patient with it while you get through the titration period and your body gets used to the medication. ... (9 replies)