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Monday, August 22, 2016

We are only 18 months into my daughter, Maggie’s Type 1 diabetes
Diagnosis. At this point in my son Clifford's diagnosis, I remember being angry
and confused. I really did not understand the full picture of what had come
into our lives. This time around however, I'm in a much better place. I am no
longer harboring feelings of anger, and there is no confusion. Instead, I
understand what we're dealing with, and what is to come.

If I had to describe where I am exactly, I'm getting over a bad
break up, before the breakup officially happens. Her pancreas hasn't quite
kicked us to the curb, it hasn't put all pancreatic responsibilities on me just
yet, it's still working, reluctantly, still fighting against the attack from
her body. There are signs it's giving me from time to time that we will
eventually 'break up' officially, those rare 200 numbers are when it lets me
know it's getting tired. But for now, I at least got the opportunity to
grieve before we've officially said goodbye to her functioning organ.

It reminds me in a way of when my Grandma first told me she was
diagnosed with cancer. I didn't know how long we had together, I knew she told
me she was a fighter and would do everything she possibly could to kick its
butt, and I believed her. She was a strong Irish woman, stubborn and tough, and
if anyone could do it, she could. Someone reading this that might not
understand Type 1 diabetes, may ask, "Are you really comparing her
pancreas to your grandmother"? Yes, Yes I am. If I could go in and
rescue my little girl’s organ from this attack, knowing full well it would
literally save her life, give her a life free of multiple injections, 10-15
finger pricks daily, and constant worry and fear that she may drop low and we
may not catch it, you better believe I'd do that in a heartbeat. Just like when
my grandma told me, I wished so hard there was something I could do to take
this cancer away from her, to kick it out of her body.

Until you've lived this life, and have a child who has to live
with a chronic illness that has no consistency, doesn't sleep, and never needs
a break like we all do, you won't truly understand the connection between the
two. So like the moment I will never forget, when Grandma called me,
Maggie's pancreas is letting me down easy, much easier than her brother's did
thank goodness. I do not know when it's officially going to kick the bucket,
that is an another blog post for another time, processing those feelings of
'not knowing'. But for now, we can enjoy our time together while we still have
it. Enjoy that she can sit down to eat without an additional injection for now.
I'm doing my best to soak in all these precious moments before we have to say
good bye to this organ that many may not realize just how vital it is. Yes, you
can live without it working, millions do daily with Type 1, but insulin
injections, and an insulin pump are not a cure, they are just life support to
keep these awesome people alive daily. But honestly, they are no substitute
when compared to fully functioning pancreas.

If you are reading this and you are new to the Diabetes community,
I encourage you to Check outTrial
Net. Get others in
your life affected with Diabetes tested for antibodies that are seen in type 1
diabetes. It could very well save their life. No matter how prepared we believe
we are, how much we convince ourselves we'll recognize the symptoms in other
children of ours, we also get busy living life, and tend to overlook things. If
you could have a heads up that it might happen, isn't that priceless?

Monday, August 8, 2016

It's almost that time of year again. The kiddos are getting ready to head back to school and start a new year. It's always a busy time with two kids Type 1 diabetes. There are supplies to be gathered, bags to be put together, documents to be prepared and meetings to schedule.

With so much on your plate as a parent of a child(ren) with Type 1 you may be overwhelmed with where to start. But I want to let you know you are not alone. In fact, the website I'm working for has put together a great article on everything you need to know to get ready for school this year.

If you are newly diagnosed this is a great starting point. Please check it out here at The Diabetes Council and let me know what you think. If we forgot anything, let me know.