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Lacey: Syntelencephaly and partial Agenesis of Corpus Callosum

Lacey was pregnant with twins when she was told twin A wasn’t developing typically. Doctors saw abnormal brain development, but didn’t have a definitive diagnosis. Shortly after birth twin A, who they named Tell, was diagnosed with partial Agenesis of Corpus Callosum and a rare condition called Syntelencephaly.

Bijan and Zach: Twins with 22q11.2 deletion syndrome, or DiGeorge syndrome, and Autism

Bijan was pregnant when she was told one of her twins had some abnormalities. They declined an Amniocentesis, and decided to keep the pregnancy. Once born, they found their son Jackson had 22q11.2 deletion syndrome- DiGeorge syndrome.

Their sons are now 3 years old. Jackson’s twin, Walker, was recently diagnosed with Autism.

Traci and Mike: Semi-Lobar Holoprosencephaly

At 4 months pregnant, Traci and Mike went to the Dr.’s office for a routine check-up, and found out that one of their twin boys, Liam, had a Cleft Lip, and some abnormalities with the development of his brain. Traci and Mike were sent to see a specialist that who confirmed Liam had Semi-Lobar Holoprosencephaly, and suggested they terminate the pregnancy, which would have terminated both of their babies.