Tuesday, November 29, 2005

Well here it is Monday night, really Tuesday morning. I thought I would have the Scavenger Hunt photo links posted a couple of hours ago and I don't. I apologize. I have been super busy. And now I have to go to bed. I have a doctor's appointment early in the morning. And so does John. So I will definitely get to it tomorrow (on Tuesday). Thanks for being patient, especially to all of you who participated in the Hunt. Krissy :)

Monday, November 21, 2005

John and I being together, eating a nice Thanksgiving feast together that God has provided us, guarding our cat Michael from stealing the giblets for the gravy, watching the Macy's Thanksgiving Day Parade, watching football

Saturday, November 19, 2005

Hi, I am back posting. I have had trouble even posting because of the whole banner ad thing. I couldn't post for two days and so I did what was suggested by AOL. I cleared my cache and rebuilt my adapter. This has caused major problems with my computer. I won't go into all of them now, but I am very upset.

I don't want to deal with the whole ad situation right now, or my previous inability to post. I have too much going on in my life to deal with it. I am going to post what I need to right now and deal with the ads and my opinions on my problems posting at a later date. Please bear with me.

So what is it that I am dealing with now? Or should I say, what is John dealing with?

On Thursday, Nov 17, John and I went to (Hershey) John's Transplant Center to see John's oncologist. Dr. Claxton, his oncologist, said that if he didn't get a bone marrow transplant there is a 100% chance of John getting AML (MDS leukemia) during his lifetime, with a 50% chance of getting it within a year. That is why Dr. Claxton has decided that John's transplant will be in January. He will have one more appointment on December 22 at which point we will find out the exact date in January that the transplant will take place.

One thing that was unexpected was that John found out he will be having a Non-ablative transplant instead of an ablative transplant. One thing that means is he will be having less chemo with fewer side effects. The Non-ablative transplant also has a much greater chance of survival, instead of the twenty to forty percent death rate of the ablative transplant.

It also means that John will have a shorter stay in the hospital , but we will still have to stay in Hershey for four to five weeks so John can have daily outpatient care. During the outpatient time, he will go to the hospital during the day, but at night he will be able to come back to the Hope House at night and spend the nightwith me! The Hope House is a place like a Ronald McDonald House. It is directly across from the hospital.

John is relieved that he is having this transplant as opposed to the other one. However, he is not kidding himself; it is going to be rough. He will still have to have high dose chemotherapy. It will last for 16 hours a day for three days.

We are not sure what else is involved. I have looked on the internet trying to research Non-ablative transplants and have not come up with much information. They are a relatively new procedure.

Now that the Vivis are over, I just wanted to say a few things. First, I would like to congratulate the Vivi winners. You all write exceptional journals. It is okay that I did not win a Vivi Award, just being among you was a great experience.

I would like to thank Jesus. Without Him my life would be meaningless.

I want to thank you, my readers. You who read me, you who nominated me. You are such an important part of my life. You mean so much to me. And to John. You have become more than just readers, you have become a support system to us. We are forever grateful.

Saturday, November 5, 2005

It's just a few more hours to the Vivi Awards Ceremony. So I guess I will get ready, lol.

Told you I was wearing red! And doesn't John look dapper in his suit? Even Michael got a new tux out of the whole thing, with a beautiful purple bow tie! I don't care whether or not Kitty is allowed in to the Vivis, he IS coming in with us, as he is part of my family. I will try to keep him off of ya'lls plates of food, lol. No, he is an obedient kitty, really!!!

Oh, I forgot, just in case I need some earrings, or a purse, I picked these up. If I don't use them tonight I can use them for the next dress up event I go to. I get to go out now at least every month (ya right, in my fantasy life, lol). So here are my accessories for tonight, straight from Frederick's of Hollywood:

Well, I guess I better go, I still have to do some last minute things. Hope everyone has a fun time tonight! Love, Krissy

I haven't done an entry since Monday. I've been in pain all week and have not been able to do it. Some days my back just spasms out of control bringing excrutiating pain. I saw a physical therapist three times this week. Yesterday I finally got a therapist that really knew what she was talking about. She taught me how to fight against the spasms, by moving into them when they occur. Gee, this makes such a huge difference when they grip me suddenly! Why didn't the other therapists show me this? So even though I hurt, those big spasms don't make me scream anymore.

What else is new? Yesterday kind of brought a surprise. Dr. Claxton's nurse called from Hershey and said that after John's biopsy slides went to cytogenetics at the Mayo Clinic, that Dr. Claxton has decided he wants to see John on Nov. 17 instead of waiting till Dec. 1. Apparently something serious was found upon analysis of the slides. Wow, I wonder what it could be? She is of course not allowed to tell us, but phoned us to come in on Nov. 17 as Dr. Claxton had asked her to. So it looks like John is on the fast track to get the transplant...

On to a much lighter note, tonight I am going to sit at the computer and attend theVivi Awards. Later on today I will be doing an entry to show you what I am going to wear to the Vivis tonight. I can't say much, other than I will be wearing red, lol! I also need to write my speech this afternoon so I can put it in my journal tomorrow. I know it won't be an acceptance one, but that doesn't matter. I love all of you so much in J-Land and I want to thank you. I love, love, love you guys!

I asked the readers of SIT what the most unique item was in their purse or wallet. The answers are listed below. Now we'll find the most unique answer among everyone! Please choose ONE answer, and don't choose your OWN! All can play!

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a little about me...

Hi, I'm Krissy. I'm just your average girl. I love blogging, Twitter, almost all Social Media, digital photography, fundraising to fight cancer, designing and making jewelry, watching Claymation Christmas specials -- just working hard and playing hard! I also love my husband John, and maine coon cat Michael. But most of all I love Jesus...
Please visit my main blog Sometimes I Think