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Thank you, Marion, and the entire CC foundation, for driving this work and assisting in funding it. Thank you from the bottom of my broken heart.Willow]]>Thu, 01 May 2014 17:52:12 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=88089#p88089http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=88076#p88076
Great news, Marion. I've shared it. Thank you xxx]]>Thu, 01 May 2014 10:06:30 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=88076#p88076http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=88075#p88075
Thank you, dear Carl. Each and every comment, remark, suggestions, support and advice given is to the benefit of all. We are a very special group connected by a disease with numerous nuances, but we are in this together. Hugs,Marion]]>Thu, 01 May 2014 03:51:16 +0000http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=88075#p88075http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=88073#p88073
Great post Marion.

We definitely need more attention paid to this disease. I know you are the best advocate we could hope for.

All the DNA contained in your cells makes up your personal genome which is packaged into 2 sets of chromosones; one set from your mother, the other set from your father. In comparison to the English alphabet with 26 letters (A through Z) our chromosones are composed of six billion DNA letters.

The Cancer Genome Atlas (TCGA) has set a goal of identifying 500 cases for each cancer selected. That however is not possible for a rare cancer such as ours and it is for that reason that the Rare Tumor Project has been developed with the aim to character at least 50 cases across 9 rare cancer types.Cholangiocarcinoma is one of those 9 designated cancer types. http://cancergenome.nih.gov/cancerssele … ocarcinoma

In the year 2012, the Cholangiocarcinoma Foundation appropriated funding of $40.000 to the UCSF Hepatobiliary Tissue Bank. An additional 44.000 had been granted to the Mayo Clinic. These institutions allocated portions of their collected tissue and blood samples to the Cancer Genome Atlas Rare Tumor Project.

Dr. Supriya Saha, Mass. General – Dana Farber Cancer Institute, received the Young Investigator Grant of 60.000 for his research project “Modeling Cholangiocarcinoma” This project is to characterize the genetic profile of cholangiocarcinoma and to develop genetic models for novel therapies. http://www.cholangiocarcinoma.org/media.htm