Father plans to sell his own kidney to fund life-saving treatment for his three morbidly-obese Children

An
impoverished father has revealed that he plans to sell his own kidney to
fund life-saving treatment for his three morbidly-obese children. Sisters (from left) Yogita Rameshbhai Nandwana, five, and Anisha, three, and their 18-month-old brother Harsh, are among the world's heaviest young children. Weighing 5st
5lbs (34kg), 7st 8lbs (48kg) and 2st 5lbs (15kg) respectively, the food
they eat in a week is enough to feed two families in a month.

Now their father Rameshbhai Nandwana, 34, of Gurjarat, India, isplanning to sell his kidney to earn the money needed to see top specialists. He said: ‘If my kids continue to grow at this rapid rate they will have major health issues. We’re terrified they will die.’

Yogita
and Anisha eat 18 chapatis, 3lbs of rice, two bowls of broth, six
packets of crisps, five packs of biscuits, 12 bananas and a litre of
milk daily. And their extreme hunger means their mother Pragna Ben, 30, spends most of her day making their meals.

She said: ‘My day starts with making 30 chapatis and 1kg vegetable curry in the morning. After that I am again in the kitchen preparing more food. ‘Their
hunger never stops. They demand food all the time and cry and scream if
they’re not fed. I am always in the kitchen cooking for them.’

Diet: Yogita
and Anisha eat eight chapatis, 4lbs of rice, three bowls of broth, six
packets of crisps, five packs of biscuits and 12 bananas daily

The couple have one older daughter, Bhavika, six, who weighs an average 2st 7lbs (16kg), and do not know why their other three children are so big. Mr Nandwana said: ‘When Yogita was born she was extremely weak and weighed just 1.5kg (3.3lbs). We were worried for her health.

'So we fed her a lot during the first year of her life to build her strength but by her first birthday she had bloated to 12kg (1st 12lbs). ‘Our third daughter Anisha also gained weight in similar fashion and by her first birthday she was 15kg.

‘But
we only realized they were suffering from a disorder when our son Harsh
was born as he too gained weight quickly during his first year. 'We
started looking for medical help and consulted many doctors but they
would just refer us to bigger hospitals that I couldn’t afford.’

Mr
Nandwana earns just Rs 3000 (£35) a month - but usually has sufficient
money to buy enough food to fulfill the large appetite of his children. He said: ‘I am a daily wage labour and I usually get paid Rs 100 a day but there are times when there is no work at all.

Family: Rameshbhai Nandwana (left), 34, and Pragna Ben (back right), 30, are the parents of Yogita
(front left), Anisha (front right), Harsh (front centre) and
six-year-old Bhavika (rear centre), their other daughter - who weighs an
average 2st 7lbs. They all live together in Gujarat, India

‘I work in fields, dig wells, and do whatever menial job I can find to earn money. 'And I’m constantly worried about finding the money to feed my continually hungry children.’

Despite
his paltry income, Mr Nandwana spends about Rs 10,000 (£110) a month on
food for his children and said he 'cannot leave them starving'

They are usually restricted to the same place for the whole day and because of that, they cannot go to school. All they do all day is eat and play and giggle with each other. I want my daughters to get an education and play like other kids. I want them to have a life. This is no life.’

Local doctors believe the children are suffering from Prader-Willi syndrome, but do not know how to treat it. The
rare genetic condition causes various symptoms including constant
hunger, reduced muscle tone, restricted growth and learning
difficulties.

Dr
Akshay Mandavia, a paediatrician at Mandavia Children's Hospital in
Gujarat, said: ‘There is an abnormal accumulation of fat in these
children. ‘They’re
not able to breathe properly, and they wheeze. Their condition could be
due to endocrinal disease or Prader-Willi syndrome.

‘But we can only ascertain the right treatment after a proper diagnosis at one of our top hospitals.’

WHAT IS PRADER-WILLI SYNDROME - AND WHY IT MAY EXPLAIN THE NANDWANAS' PLIGHT

Prader-Willi syndrome (PWS) is a rare genetic condition that causes a wide range of problems.

These include:

a constant desire to eat food, which seems driven by a permanent feeling of hunger and can easily lead to dangerous weight gain

restricted growth, leading to short stature

reduced muscle tone

learning difficulties

lack of sexual development

behavioural problems, such as temper tantrums or stubbornness

It
is caused by a genetic defect on chromosome number 15, which happens
purely by chance, and is usually diagnosed by carrying out genetic
tests. Sadly, there is no cure for the condition. Instead, a team of healthcare professionals will help teach parents to manage any problems the child has, such as overeating.

Children
usually want to eat frequently, so it is important that most of the
food they eat is low in calories, and that access to sweets and fatty
foods is restricted. Getting
the child to stick to an eating plan voluntarily is practically
impossible, so parents usually need to lock any storage areas that
contain foods, such as fridge or cupboards.

They
should also search the child’s room for hidden foods, forbid them to
leave the house unsupervised, or play with other children who are eating
food, in case they try to steal it. Any family, friends or teachers should be informed of the need to restrict their diet.

The child should also be encouraged to exercise as much as possible. If
the child has restricted growth, treatment with an artificial version
of the human growth hormone (HGH) is usually recommended, as it can
increase their final adult height by around 10.5cm (4.1 inches).

Most
adults with Prader-Willi syndrome are unable to live fully independent
lives, such as having a full-time job and living in their own home. Their behavioural issues and problems with food mean these environments and situations are too demanding. Adults with the syndrome who don't live with their parents will probably require residential care.

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