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Monday, October 31, 2011

NF Clinic

Today Sara attend her annual visit to the NF clinic. She did great, and for the most part, was cooperative with the doctors.

Sara's MRI we did 10 days ago shows that the tumor in her belly has
grown barely at all. It had "no visible change." The report does
state, however, that the tumor has moved further into her lower spine,
and her left hip is almost completely dislocated now. There is nothing
we can really do about her spine, but I'm planning to schedule a consult
with her orthopedic oncologist to see what he thinks about the
increasing issue with her hip. At this point Sara doesn't complain of
pain, so I don't feel any rush to do anything about it...especially
since it would seem that walking isn't in her future.

Everything else went really well! The doctors seem happy with her
progress, and so am I. We have no plans to do any testing or return to
NF clinic for another year!

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I am blessed to have my daughter, Sara, in my life. And although she brings more challenges then most children because of her NF, I think it makes myself and the people around us appreciate life even more. We are blessed to have amazing family and friends to share this adventure with, and to count on when times are rough! Being a single mom isn't always easy, but being her mother is the best thing that ever happened to me!