VHL Canadais a small registered charitable organization* started by a patient in 2016 that facilitates peer support with people who are coping with VHL in Canada

VHL or von Hippel-Lindau Syndrome is a rare genetic disease characterized by the growth of both benign and cancerous tumours in several parts of the body. For 1000 or 1/36,000 in Canada, it is often a life-long battle