‘We welcome the commitment from the government that improving end of life care remains a priority for the new government. The report gives a number of examples of distressing end of care which are clearly unacceptable. If the situation is to improve, it demands closer working with organisations such as Rainbow Trust. As the leading provider of vital emotional and practical support to direct to families who have a terminally ill child in England we give families a real choice and control to choose the place of care and death for their child.’