Wolf pushes for a Rare Disease Advisory Council in Pennsylvania

In Harrisburg Friday Governor Tom Wolf signed a bill to establish a Rare Disease Advisory Council in Pennsylvania, aiming to serve public and private agencies that serve people suffering from rare diseases.

“Far too often, individuals with rare and unique diseases can feel lost because services are not tailored to their specific needs,” Wolf said in a statement.

“We need to make sure that when a person is sick, no matter what their disease, or how rare it is, that that patient has the best care available, and that they can reach a high quality of life as they battle their health issues. This advisory council will help us do that.”