Monday, December 22, 2008

I have been wrestling with myself daily for about a year now regarding a procedure for Elena. I decided (well, made a surgery date) for E to undergo Selective Dorsal Rhizotomy early 2009. I'll comment more about it before and after the procedure. If anyone has done this--or decided not to, I would welcome your comments.

Elena had her third eye surgery with Dr. P on October 29th, 2008. She is definitely getting smarter when it comes to her appointments...she knew she was going to have an operation. She waited until the day before she and Jason left for Northern Virginia to ask me The Question: "Will this hurt?" I told her a little, and then her eyes will feel a little scratchy...and after her nap she'll be fine.

Overall her attitude was great--until she was carried into the OR and the doors closed. Then Jason could hear her crying. She was pretty good when she woke up, though.

The results were quite good--but that was true last surgery, too. I have seen her on two occasions "drift" since the procedure. One eye (at a time?) seems to drift "upward" these two times. This happened before and it resolved itself. I can only hope that the third time's the charm, and eventually her eyes resolve to stay together.

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Mission Statement

No one plans, or expects, to have a child with a disability. When this happened to us, we started a desperate search to find information relating to milestones or expectations for our daughter after her diagnosis. Most of this was fruitless. My hope is for this site to help any person or parent in a situation similar to ours.

About Me

I'm a work-hard, play-hard multitasking wife and mother of two. I'm lucky to have a supportive family and friends, and live in a great town for children with (and without) disabililties. Elena is my firstborn, born at 33w with moderate spastic diplegia. Vivian is my secondborn--almost at 28w, but with a lot of help, made it to 38 1/2w and developing normally; she was diagnosed with focal epilepsy at age 9.