In July I was alerted to some children in Wajir, Kenya who are suffering terribly from Ichthyosis. I rarely use the term 'suffering' but these children really are. My heart breaks for them.The children haven't received adequate medical treatment and are hidden from their … [Read more...]

On Wednesday night I had the pleasure of attending the Australian Centre for Leadership for Women Diversity Awards in Sydney. From the website:"ACLW’s Awards Program commenced in 2006, culminating so far in three national awards for women’s advancement, with more than 60 … [Read more...]

Last week, an article was published about two young siblings in India living with Lamellar Ichthyosis. The article describes the children as having snake skin.Sayali (13) and Siddhant (11) Kapase live in Pune, India. The children, along with the parents, Sarika and Santosh … [Read more...]

It's an exciting week for disability-inclusive fashion - from chainstore to runway. Two young Australian women featuring in the Target catalogue and in New York Fashion Week. This week, Target features a young woman with a disability in its catalogue. Robyn Lambird, who … [Read more...]

This article from Stock News USA came up in my google alerts yesterday morning. You can read the full text here. "Suffering from horrible harlequin Ichthyosis.""When she was born, she looked like an alien. It was very traumatic""Her bizarre condition."Those three excerpts is … [Read more...]

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The material on Tune into Radio Carly is copyright.
The writing in this blog is by Carly Findlay unless otherwise stated.
Most photos in this blog are by Carly Findlay unless otherwise stated.
Please do not reproduce without permission from Carly Findlay.
This blog represents my personal opinions and experiences. It does not reflect those of my employers'.
The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about.