Personalizing the Academy

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The author of this post is a transgender person conducting research on higher education in the United States. Here, in Part One, they discuss cisgender assumptions, norms, and influence that impact higher education scholarship, and next week in Part Two, they continue this discussion and suggest ways to overcome and work against these issues in higher education and other fields of scholarship.

In my previous life, I was a student affairs practitioner, a role I thought I would stay in for a good long time. For folks who might not know what that is, student affairs practitioners are (usually) non-academic professionals on college campuses that are the student-facing individuals – for example, staff who work in residential life and housing, student activities, career services, or multicultural affairs, to name a few. Most recently, I was in the latter category and dabbled in some other ones, and I really saw myself moving up the campus diversity work chain.

Then I decided to go back to school and try out the faculty route instead.

One of the handful of reasons I did that, although admittedly not the primary one, is because of the incredible dearth of literature in the higher education and student affairs (HESA) field – yup, it’s a field of its own, supposedly interdisciplinary, and fairly young – about trans students. Trans staff and faculty didn’t really exist; what little there was was about students, primarily undergraduates. Very little of it was actually helpful for me as a practitioner, most of it was non-empirical (usually “best practices” or “trans 101” type of work), and hardly anything felt like it was about me.

The last point rings ironic to me now, because as an undergraduate student I was a participant in a study on trans students, one cited fairly often and actually one of the better studies out there. My words are in there – they’re in quotation marks, after all – but reading the published article now, something about it reads… not me. Sure, I myself have changed a lot since then, including how I see myself and articulate my conceptions of gender. But it’s not the words in the quotation marks that sound off. It’s the analysis, the translation of them to a dominantly cis readership, that puts a distance between them and me. The “trans-“ prefix in “translation” feels oddly inappropriate here. Maybe I should call it cislation instead.

Cislation goes hand-in-hand with ciscentricity, which Johnson (2015) described as a practice that imposes a cisgender worldview marking trans perspectives and experiences as other. Some of our experiences and how we talk about them don’t make sense to cisgender people. Additionally, because so much of our own hirstory and language is inaccessible to us, we might ourselves engage in cislation. As trans folks, we are also at times limited by our own internalized cisgender worldview and lack the ancestral know-how to articulate ourselves in a more authentic-to-us way, or try to simplify our complexities so that we are not too much to deal with for cisgender people.

Johnson (2015) also laid out a series of cissexist analytical pitfalls in research, which although were derived from examining sociology, could easily have been about HESA. In addition to ciscentricity, these pitfalls include cissexist double standards, objectification, and overgeneralization. That’s the dominant HESA literature on trans students in a nutshell right there.

Call it a lack of courage, call it a desire to stay connected to cisgender people, or whatever else you like, but my academic status makes me cautious here as I proceed. The HESA field is pretty small. Our scholarly association boasts 2,000 members as compared to over 13,000 in sociology or 115,000 in psychology, just to give you an idea. And if I’m invested in making an impact in the field as a whole (which I am), and not just at whichever institution I happen to work, I need to stay somewhat connected and not entirely a persona non-grata. So rather than stomp on specific research projects or scholars, I’m going to speak in generalities here. Most of the folks researching and writing about us so far in the field have been cisgender people and that reality has brought on some issues.

Let me start there – with researchers being cisgender. One of the things consistently missing from studies on trans students done by cisgender researchers is reflexivity – an acknowledgment and awareness of their own limited gendered worldview and how that might both exert power over trans participants, as well as influence what (yeah, we are holding back, because we don’t really know whether we can trust you as so many of you have hurt us) and how (we distill ourselves into descriptors that we think you might understand or accept) and which (it’s not just your gender identity that causes some of us not to respond to your call) participants share their experiences with them, not to mention the whole cislating thing again.

Speaking of cislating, one of the things I am tired of reading are long and often static/inaccurate/problematic/limiting terminology sections in every paper or book that includes trans people’s stories. Yup, I totally get it, some folks (including trans and gender-questioning folks) do want/need this in order to engage with the rest of the material and language can be very inaccessible. But what concerns me about the persistent existence of and demands for these terminology sections is that they continue to ‘other’ us, by positioning us and our identities as inherently unknown and un-understandable without quick and easy definitions. And it’s that “quick and easy” part that lends itself to further oversimplifying and generalizing our genders, and marking them as static rather than fluid and contextual. What if instead we admitted that language is limiting; that we can’t possibly fully understand everyone else’s gender and most of the time don’t really need to; and that to actually know the meanings behind the words we (each) use to describe our genders at any given time we would actually need to invest in building trusting relationships with each other? And this might seem a bit petty, but every time I’m asked to include one of these terminology sections, I have to then decide what to leave out in order to meet a particular journal’s word limit. Whose story is less compelling, which quote is less poignant, which implication is less important? We are literally being erased, and being asked to collude in that erasure, in order to make room for cisplanations.

Have I riled you up much yet? Don’t worry, or maybe be ready for more worries, there’s more. In part 2 next week, I’ll move into my disappointments with qualitative studies, say a bit more about the cis gaze and its impact, and respond to the inevitable question of whether cisgender researchers can/should do any trans research. And I promise, I’ll end it with some sunshine and rainbows for the scholarship in our field.

The author of this post is a transgender person conducting autism research at a major Midwestern university. Here they reflect on ways cisgender bias may impact neuroscience findings and theories and how transgender and autistic voices and insights could help alleviate these problems.

Two relatively recent* publications (see, here and here) address rates of autism among transgender people, finding that autistic people are over-represented in transgender samples relative to cisgender samples. Both of these studies are informed by the “extreme male brain” theory of autism, which posits that personality traits/cognitive styles are reliably sexually dimorphic, and that autism is associated with extremely “male typical” traits. The extreme male brain theory relies on the assumption that personality traits are gendered AND consistently associated with the brain, and that increased prenatal androgen exposure is a likely cause of these brain differences. There has been a great deal of excellent scholarship (see, for example, here, here, and here) in feminist science and technology studies that critiques and questions these assumptions that I will not rehash.

These trans/autism studies have similar experimental designs: researchers collected data from a sample of transgender individuals receiving care at a gender clinic. These participants completed an assessment form called the Autism Spectrum Quotient (AQ). This form is designed to assess for traits associated with autism, and is divided into social, attention switching, attention to detail, communication, and imagination subscales. Both of these studies used the same dataset of cisgender people as their comparison sample. This cisgender dataset is previously published and includes AQ norms for a large sample of (presumed) cisgender people.

There may be more trans autistic people than would be expected from the prevalence of each of those identities in the broader population. I want to be clear that this is not a “problem” for which we need to determine the “cause.” I do, however, want to problematize the way that assessment tools, designed and normed for cis populations, can lead to invalid claims about transgender people. Importantly, many autistic people, trans and cis, have already critiqued the ways in which representations of autistic people in the research literature and elsewhere do not consider autistic perspectives (see, for example, here and here). Others have emphasized the way that autistic ways of communicating are pathologized in a literature dominated by neurotypical perspectives (see here for example). Measuring social skills by assessing comfort and enjoyment with interacting with neurotypical people misses the point. My critiques of ciscentrism in this literature are greatly indebted to the work of cis and trans autistic activists, writers, and scholars.

“Many of the individuals in the current study have reported that they did not fit in with others; indeed, both MtF and FtM cohorts showed more dysfunctional scores in the social skills subscale…supporting a reported sense of impairment.” (Pasterski et al., 2014, p 391).

I am not socially impaired when I have difficulty fitting in cisgender culture or with cisgender people. The AQ has captured trans people’s experiences with marginalization and transphobia. Many of us prefer routines and predictability, one of the traits measured by this scale. Routines become important for many of us as strategies to avoid transphobic violence: this is the restroom I can use safely at school, if I take the 5:30 bus home from work I am less likely to be harassed, I wear my hair this way every day so I am less likely to be misgendered, etc. We “prefer to do things the same way over and over again” because it keeps us safe.

Likewise, questions on the AQ about enjoying childhood play remind us of the way our imaginary play was policed and gendered. Many of us did not enjoy playing imaginary games with our childhood peers, because there was no room for us to imagine our trans selves in a story, or because our favorite toys were taken from us. The AQ also assesses attention to detail with items such as: “I often notice small sounds when others do not” and “I tend to notice details that others do not”. Attention to detail also keeps us safe. Particularly given the high rates of PTSD in trans populations, high could be due to sensory hyper arousal, which can also be present in some autistic people, but is a general construct not necessarily related to autism per se. Items like “I find social situations easy”, “I find it hard to make new friends”, “I enjoy meeting new people”, etc. are all attributable to the difficulty we can experience navigating a cis-dominated world. “Social chitchat” is not enjoyable for me because it so often devolves into invasive personal questions about my transition status or my relationship with my parents.

Personally, I have a complex relationship with “thinking of myself as a good diplomat” because, as the only transgender PhD at my institution, colleagues constantly demand that I represent trans people. On days when I gently correct a colleague for casually insisting that “pronouns aren’t important,” I think of myself as an excellent diplomat. By the third time I’ve been asked to give an uncompensated Trans 101 in a month, not so much. Likewise, I am certain that many of my colleagues and friends are tired of hearing me talk about the poor scientific quality of the transgender medical and biology literatures. “People often tell us that we go on and on about the same thing” because we are compelled to speak ourselves into being in a culture that would prefer we not exist.

I would venture that at least twenty of the fifty questions on the AQ are not valid for transgender people. Because of ciscentric bias, these researchers forgot the most famous maxim in science: “correlation is not causation.” The authors attribute differences they observed in transgender people to be causal rather than correlational; they did not consider the (obvious to any trans person) idea that being transgender mediates social experiences. Attribution of elevated scores on the AQ to an “extreme male brain” among trans people makes several logical leaps.

These leaps aren’t “caught” by cisgender researchers because of their unexamined ciscentrism, although Pasterski and colleagues do acknowledge that the extreme male brain theory doesn’t fit their findings in trans women. Regardless, inclusion of transgender autistic people in the research process (from hypothesis generation to data interpretation) would improve the scientific quality of this work and increase its relevance to trans and autistic people. Chillingly, Jones and colleagues end their paper with the following recommendation: “Clinically, even if only for a minority of individuals considering sex reassignment surgery (sic), the formulation of undiagnosed autism might be a helpful alternative to explore” (p 305).

*It’s 2017 and trans research in psychology and neuroscience still regularly uses the Blanchard typology.

Kale Edmiston, PhD is a postdoctoral fellow at the University of Pittsburgh Department of Psychiatry. He is a transgender person and neuroscientist whose research focuses on visual system function in anxiety, as well as transgender healthcare.

What would a transgender peer review look like? Where does knowledge about transgender people originate and how is it cited? This blog series will ask questions about what it means to publish on trans identities and trans bodies. For this series, transgender scholars will address these questions by providing critical, collegial review of the recent transgender literature in their discipline. We are especially interested in pieces that address unexamined ciscentrism in the peer-reviewed literature, as well as pieces that offer alternative research questions, hypotheses, or interpretations that center transgender ways of knowing.

How does cisgender identity bias scholars? How would scholarship that engages with trans topics look if it were produced and funded by transgender scholars? It likely would include fewer rehashes of Trans 101. It might emphasize the ways that racism, classism, ableism, ageism, mononormativity, and heteronormativity impact trans people. Such a literature would certainly be less concerned with why we exist or how best to categorize and describe us. Historically and continuing in the present day, much of the transgender literature wonders, “How can we correctly identify transgender people?” Transgender scholars may prioritize different questions. However, many transgender academics are often more junior due to legacies of exclusion from higher education, and struggle to build collaborations and access resources controlled by more established cisgender scholars and researchers.

We invite trans-identified scholars to contribute to a public peer-review series of the recent cross-disciplinary transgender literature. This is an interdisciplinary project, and we invite submissions from trans-identified scholars in humanities, social sciences, and STEM disciplines who engage with transgender topics as a part of their scholarship.

If you’re interested in participating in the series, please direct any questions or submission ideas to wewritewhereithurts@gmail.com or edmistonk@upmc.edu.

In this post, J discusses the creation of a new series of independently published novels exploring Queerness in south, and the attempt to create the stories people in marginalized groups too often only get to wish we could have read about our own lives.

I have been a devoted reader and fan of Toni Morrison for as long as I can remember. For me, the many ways she has found to capture the raw, passionate realities of the world, the good the bad and everything in between, and the complexities and nuances of racial, gendered, classed, sexual, and regional experiences are beyond comparison. Her work is both an inspiration and a level I cannot even imagine myself or anyone else actually reaching. I almost never write anything without thinking about one or another of her works, and I regularly re-read works of hers between my own fictional and non-fictional writing bursts.

Without thinking about it consciously, I have been following this advice throughout my career. As a researcher and teacher, most of my work to date involves incorporating Queer, Bi+, Trans, Non-binary, Poly, and Agnostic experiences and perspectives into existing scientific theory, research, and education as well as directing students to vibrant LGBTQIAP, Black, Hispanic, Asian, and Cisgender Women’s literatures, sciences, histories, and arts. Though I never thought of it in such terms until reading this quote a couple years ago, in all such cases, I have sought to write and teach things missing from my own upbringing and education that, after finding them on my own and with the help of wonderful mentors, I think should be more well known, recognized, and represented in scientific and educational settings and contexts. While I spent much time with these thoughts a couple years ago, they really came back to me in an even more personal way as I began to craft fiction for the first time since failed attempts in my twenties, and only intensified when I published my first novel.

I kept remembering the younger version of me searching for myself and the other Queer people I knew/found in the south in media, in literature, in music, hell anywhere. I (much faster than I would have guessed) received a couple emails from other young people who felt the same way, and appreciated finding my novel. I spoke with other Bi+, Trans, Non-binary, Poly, and otherwise Queer authors about the limited media, literature, and other representative options even now, and with people in these groups who wished for these stories though they themselves were not in the process of writing them as they felt called to other types of work. I spoke with Lesbian, Gay, Black, Hispanic, Jewish, Muslim, and Cisgender Women friends and colleagues who experienced similar feelings growing up, who were seeking to create more representations of their lives in science and art, and who wanted such things whether or not they had any intention of creating them. From the moment I delivered my manuscript to a couple months after its release, I kept having these conversations and thinking about my own feelings back then and now.

And, I kept returning to Morrison’s words: “If there’s a book you want to read, but it hasn’t been written yet, then you must write it.”

I looked at the novels I had completed, edited, and put together. I kept digging through them as I prepared the novel for release without even thinking about it, and kept doing so after the release wondering what to do (if anything) with them. Some of them were already in various stages of review and consideration at traditional publishing outlets, but others were unconventional in some way – in length, style, or other facets – and I wasn’t sure what to do with them. I remembered the many paperbacks and zines I read when I was younger by Lesbian Women and Black people that self-published their work to get it out to others. I thought about the number of people I’d met of various backgrounds who were self-publishing novels, comics, video series, music, and other things even more easily due to the available platforms today. I collected every bit of information I could on all the platforms and options, and gathered incredibly useful positive, negative, and everywhere in between advice from colleagues and friends. After thinking through every possible positive and negative, I decided to create a series of self-published works alongside my more traditional scholarly and fictional publishing.

This series of events led to the announcement on my social media accounts last week that I will be launching my own self-published series of fictional works entitled the Queering Dixie Series. Each of these novels will explore some aspect of Bi+, Trans, Non-binary, Lesbian, Gay, Intersex, Asexual, Poly, Aromantic, or otherwise Queer experience that I have seen, experienced or learned about from others in the south over the past 20 years. Each work will focus on different characters and stories, but there will often be overlap between the stories as they all take place within the same fictional world that I created based on my experiences growing up, working, and living in the south throughout my life to date. While they will all be entirely fictional stories, each one will offer snapshots of real experiences various types of Queer people have had in the south over time, and issues Queer people in the south faced and / or still face in the process.

Like Cigarettes & Wine, these stories and all my other novels seek to shed light on the diversity and complexity of southern Queer experience by exploring the good, the bad, and everything in between as well as the multiple ways people create and sustain Queer lives in a regional context often at the forefront of opposition to Queer existence, rights, and well-being. In so doing, I hope that I’ll join with so many other artists and scientists to do my small part in increasing the chance that when others go looking for our stories and our lives, they may have a better chance of finding them.

In this post, Xan reflects on the weight of chronic illness, and role of emotions, expectations, and caregiving in the experience of chronic illness and emotion management.

In my last post I wrote about the fallacy of people thinking I cannot carry things because like many people with cystic fibrosis (CF), I am very thin. “But it’s heavy!” strangers will say. “You can’t possibly carry it all by yourself.” If only they knew. I manage just fine with heavy material objects, provided they aren’t especially large or unwieldy. No, the heaviest burdens I carry are those unseen to others.

Knowing the data, knowing people with your condition have an average life expectancy in the high 30s range, constantly explaining “well it’s really a bimodal distribution differentiated by access to care and a bunch of contextual factors” to wide-eyed people whose eyes well up with tears because it’s too hard for *them* to handle to know you are sick. Now *that’s* heavy. I spend so much time explaining things that people could Google, so much time bending over my phone responding to messages asking if I’m okay when what people really want is for me to make *them* feel okay. My neck has begun to hurt from the weight of my head literally dragging me down.

So now I’m holding my phone at 90 degrees to my face, stretching my neck and thoracic muscles, asking myself tough questions about why I’ve always swallowed whole the assumption that it’s my responsibility to do the emotional labor of coddling people in my life under the guise of helping them get educated. It’s never the people closest to me who ask for this. They know better, or they wouldn’t have gotten so close to me in the first place. Asking how I am is kind and affirming. Using that question to spend the next 30 minutes gobbling up all the emotional support you can from me about how hard my diagnosis is for you and how much it scares you…is not. It literally weighs me down.

Being open about your fears is a tremendously good thing in and of itself. It’s where you seek support in coping with those fears that matters. This isn’t black and white; it’s a question of nuances. Ring Theory offers a good way to understand socially affirming flows of emotional support, using a simple algorithm of “comfort in, dump out”. The basic idea here works like an earthquake. The person dealing directly with the challenges at hand (terminal illness, loss of a loved one, sexual assault, etc.) dwells at the epicenter. Then shock waves radiate around the epicenter with progressively lower intensity as distance increases. A life partner feels them most intensely, followed closely by other family members who are close to the person. Then come very close friends, then other friends and colleagues in a much bigger ring, and then casual acquaintances.

I’m a pretty textbook long-surviving CF patient in many ways, including both all the issues I do experience and what has heretofore been more minimal involvement of the pancreas. Whether I have any pancreatic involvement remains unknown, because I definitely have some bizarre endocrine symptoms these days. I just keep coming back to the fact that I had low-positive results on a sweat test *and* so many of the core clinical signs of the disease and nobody gave a damn. Why was my case dismissed when my parents kept fighting so hard to get me medical care? Why did I have to be treated in fragmented little pieces by specialists focused on this or that organ? Why did I have to undergo surgery to rebuild mucous membranes that could have been reasonably well protected by drugs that were already on the market? These questions pull me down like heavy stones.

I see a CF specialist tomorrow for the first time in my entire 33 years of life and these questions spin through my mind constantly. And I feel the lingering fear that this doctor won’t believe me either, that I’ll now be caught in a terrible limbo of knowing I need a specific type of care yet being just as unable to get it as when I had more questions than answers. Maybe I still have more questions than answers. I spend most of my time trying to answer other people’s questions, though. And it has exhausted me so thoroughly that I feel empty inside, as if my disease consists more of the need to justify it and reassure others than of its terrible physical mechanics, which I wind up with little cognitive space to consider. I go to bed each night feeling as if the day has drained all the life from me, questions racing through my mind in the darkness that surrounds.

I don’t have any real answers. I wish desperately that I did, but I don’t, and I often feel as if I’ve failed the people in my life because of that. All I have is a lot of lost time and an opportunity to do things differently with a doctor who stands a chance of understanding my case and my needs. So…to be continued. I’m excited about meeting with the specialist. I try to Be Positive in all things. But there’s so much beneath the surface, and it feels exceptionally heavy today. So I strive to grow more proficient and comfortable in asking others to shoulder a piece of that burden, not my grocery bags or guitar equipment. For it’s the invisible weights that bring us down the hardest.

Katie L. Acosta, Ph.D., is an Assistant Professor of Sociology at Georgia State University where she teaches courses on race & ethnicity, sexuality, gender and the family. In this post, Dr. Acosta reflects on teaching and academic freedom under the Trump Administration.

I recently attended a meeting designed to explain the boundaries of academic freedom to faculty members and to brainstorm best practices for creating a non-hostile classroom environment that presents students with a balanced picture of contemporary political happenings. “Try not to make statements that directly disparage a political candidate,” we were instructed. “Consider focusing on policy issues rather than personal characteristics. Consider avoiding clothing or paraphernalia in the classroom that directly support a particular political candidate. You don’t want to wear anything that might appear antagonistic to students who may not share your point of view…”

This is where we are in higher education under a Trump administration. I’m supposed to teach my students about their social world, about Racism, Gender, Sexuality and the Family – while remaining neutral on the hostile and deeply-offensive statements that our president has made during his campaign and since he was elected. But herein lies the problem, my political ideologies are shaped by my sociological lens and my sociological lens is shaped by my personal experience. These three things do not, nor have they ever, existed in separate spheres for me. Arguably this is what makes me a good professor, or at least it is what fuels my passion for what I do.

Sitting in this meeting hearing the suggestions being made brought me back a few years to the morning after Trayvon Martin was killed. That morning, I was scheduled to be in my Introduction to Sociology undergraduate classroom teaching about racial bias. I remember my heart racing as I scoured through social media learning the details of this awful tragedy. I desperately wanted to cry, but instead I pulled myself together and walked downstairs to teach. I had decided I would avoid the topic entirely. I was certainly not in any position to have a “balanced” conversation about it with my students. Avoiding the topic was the only way that I knew how to keep myself from feeling my pain. Inevitably, however, ten minutes into the lecture a student raised their hand and wanted to discuss the events. Most of the class still did not know who Trayvon Martin was. And as this student explained the events that transpired, I remember looking at their mostly blank, white faces, first with perplexity and then with anger.

I began to feel myself shaking behind the podium. How could so many students have such blank stares hearing about this boy’s death? My rage regarding this incident is deeply personal. As a mother of a black teenage boy, I imagined my son walking at night with a bag of skittles. But, my rage was also fueled by my sociological understanding of this incident as part of a larger systemic problem in our society – of this country’s fear of Black men and boys and of this country’s failure, time and again, to give them the benefit of the doubt during these encounters.

Channeling my sociological lens and harnessing my personally-driven passion helps me bring intellectual material to life for my students. It allows me to make their learning about more than just words on a page, key terms, or lecture notes. It allows me to make their learning about something real, tangible, and consequential. How do we get our students to understand the consequences of political happenings without letting them see why we are invested in these issues? I would never want a student to feel alienated in my classroom, but I have no interest in perpetuating an idea of myself as a disembodied worker whose personal life and work life don’t intersect. I can’t think of a single Sociologist that I respect who maintains these artificially separated worlds.

Keeping our political selves out of the classroom also presumes that our bodies do not advertise this self. I am an Afro-Latina queer cis woman. Don’t these identities speak for me even if I don’t? How many of my students believe they know my political leanings before I ever open my mouth? And if my students do make assumptions about my politics, then why not make my political ideologies clear in the interest of transparency?

I spent the first few weeks of this semester stumblingly awkwardly over how to teach my courses without being too political. But I don’t believe it’s done me or my students a bit of good. Instead, it’s flattened my delivery and robbed me of the passion that used to come with every lecture I delivered. So now, I’m going to take a different approach. Our democratic system as it currently stands is the most illustrative example I could possibly come up with for the prevalence of racism in the United States.

Rather than ignoring political happenings, I can draw connections between sociological theories about racism and our contemporary reality. Only in a country that refuses to take an honest and direct look at the deep-seated racism that plagues it, can we have fertile ground for the Trump phenomenon to flourish. And only in a democracy that is largely run by white men who refuse to acknowledge their privilege do we see such willingness to overlook the racist, Islamaphobic, sexist, homophobic, biphobic, and transphobic actions and policies of Trump’s cabinet picks.

While this is something that I do not have control over, I do have the opportunity to ensure that the next generation doesn’t so thoroughly miss the boat when it comes to understanding the covert and overt ways that racism exists and persists in our country. I will continue to encourage my students to engage in respectful dialogue with me and one another on the many issues we currently face not with a forced or feigned sense of neutrality but with the promise of respect, integrity and in the spirit of understanding. For creating this environment in my classroom, I apologize to no one.

In this post, Xan reflects on relationships between consumption and fitness while placing these cultural patterns within the context and perspective of people managing chronic conditions.

Recently the New York Times published an article about outcomes from wearable fitness devices. The takeaway from this article was that “Fitbits and Apple Watches and the like may have their uses, but they don’t appear to be effective in weight loss.” No surprises there. I’ve always looked at these devices as part of a culture of “conspicuous fitness”, in which folks manage their image more than their health.

I do like that these devices often encourage people to view activity as a continuous spectrum rather than a dichotomy of active vs. inactive pursuits. But most folks who wanted a life with physical activity integrated into the process of doing other things, like getting to work or shopping for groceries, were probably already doing that stuff. Plus, expensive devices really don’t target demographics of folks whose activity may be more limited by environmental factors like street safety and air quality.

The whole “conspicuous fitness” thing also seems alien to me because of the aggressive norming of how we perceive people as “fit” or not. I’m never going to be running marathons–which the literature suggests is probably not that great for you anyway, but I digress–or climbing mountains. But I have good strength and work to maintain it. I like to walk, either alone with some music or sharing time with my spouse. I like to dance at concerts and at goth clubs when I go.

And then there are the can’ts. I can’t run or ride a bike for long distances because the cystic fibrosis (CF) has attacked my joints, so anything causing impact or intense repetitive stress is decidedly off the table. I can’t swim in pools because I get pseudomonas infections easily and the chlorine plays havoc with my skin. I can’t go hiking in places where there’s no restroom access–peeing in the woods is well and good, but other things not so much. I can’t go waterskiing or do other stuff where I can’t use a bathroom at a moment’s notice.

I don’t mesh with the picture of “fitness” in many people’s minds, yet the work I do to keep my body strong–and how I integrate it into the bigger picture of my life–makes a big difference in my ability to live well with such a pervasive disease. People often think I’m frail. I wrote a publication about it. People don’t think I can kick some ass if I need to. My first paying job was teaching karate classes for junior students. People chronically underestimate me. They try to keep me from carrying my own groceries, from moving heavy things. The element of surprise never seems to lose its power.

I define “fitness” as part and parcel of my own continuous process of illness management, in which I adjust daily to nuances in the challenges of living with CF and its consequences. My disease and how it limits me seem as normal to me as the ways in which CF does *not* limit me. Walking down the street, legs in rapid swing, feels about as normal as it gets. But this activity gets read differently if I wear the sheath dresses and blazers I favor for work, or my weekend jeans and band T-shirts, versus spandex leggings and trainers.

I’m never that person cruising the produce aisle with workout gear and an mp3 player strapped to my arm. I have no interest in being that person. Trying to convince the world that my body conforms to preconceived notions of “fitness” would be an utter lie. I may be relatively strong, but I’m not *vital*. Article after article flying through my social media feed chirps that “fit” people don’t feel tired all the time. What goes unsaid is that many of these journalists never bother talking to people living with chronic diseases that impact our mobility, our activity choices, our energy.

Which is a shame, because you’ve got to be pretty damn fit in a number of ways to function at a high level with diseases that constantly attack your body from the inside out. Doubly so if you want to keep your independence, something many of us cling to like a life preserver, as if it is the only thing holding our mortality in check. Sometimes carrying our own groceries or wrangling heavy equipment feels like all we have. So all of this got me thinking about perceptions and reality, and about the nature of heaviness when you carry a ponderous burden everywhere you go. And that is a topic for a separate post.

While I have long utilized arts – especially stories and music based – to teach and enhance my research, it wasn’t until the last year that I came into contact with a broader pedagogical and methodological tradition and community of scholars engaging in similar works. Arts based research, as its often called, is a research and teaching tradition that seeks to bring scientific insights to broader audiences and bridge gaps between varied ways of knowing by utilizing artistic mediums to convey scientific findings to audiences of varied sorts. As Dr. Patricia Leavy notes in Method Meets Art, this type of work seeks to translate data, findings, and complex theoretical debates into more readily and easily accessible conversations for students, colleagues, and broader audiences who would benefit from such knowledge, but may not be as well versed in the technical or official languages of peer reviewed journal articles and texts. Further, as Dr. Nowakowski and I have noted in previous publications drawing on teaching evaluation studies and experiments by others, the translation of data into stories and other narrative forms often increases student and public engagement with materials and allows potential learners to personalize important findings and theories in ways that make them salient in their lives beyond classrooms.

It was with these approaches in mind that I began utilizing artistic works in my classes as a way for students to apply theories and methods from journal articles to examples they might face in their own lives. For example, I utilize offerings from the Social Fictions Series to translate social scientific concepts and issues into opportunities for students to engage with and consider the ways such things play out in their own lives. When discussing class dynamics, for example, I may have students look at American Circumstance and other novels exploring class dynamics in the lives of characters from the same socio-demographic backgrounds as my students. Similarly, when discussing social justice and things students might do if they are interested in promoting justice in society, I may have them run through one of the plays in ReView or other anthologies of such work to think about planning, strategy, and the reactions of others to such endeavors. Further, in recent months I’ve begun incorporating poems, songs, and stories colleagues of mine have composed about specific social events and movements as well as publishing my own first research based novel – Cigarettes & Wine – concerning Queer experience in the south. In all these and more cases, my incorporation of more artistic representations of data, findings, and theories has in each case facilitated even more student engagement, student discussion, and student investment than other methods I’ve attempted over the years, and in many cases, students have returned long after such class meetings to further discuss the works and talk about sharing these works with friends and families who – in many cases – never took much interest in the purely academic materials from the classes.

These experiences have led me to think more and more about the utility of arts based research and the teaching of science through the arts – especially in a social context wherein narratives and stories often carry more weight among many population groups than any raw data seems to be able to. As such, I wanted to use this space today simply to encourage others to think about the possibilities of arts based research within and beyond classrooms, and the ways such efforts might enhance attempts to engage and motivate students concerning complex and often socially and politically important topics in our world today.

In this post, J. Sumerau reflects on the process of outlining, composing, and publishing Cigarettes & Wine, a southern bisexual and non-binary coming of age story set in the 1990’s and based on zir experiences as a bisexual non-binary person and researcher collecting stories of other sexual and gender minorities over the past couple decades.

Yesterday, my first novel – Cigarettes & Wine – was officially released. The novel is a southern bisexual and non-binary coming of age story set in the 1990’s based on hundreds of formal and informal interviews with sexual and gender minorities throughout the southeast I’ve collected over the past couple decades as, first, a curious bisexual and non-binary kid and later, as a researcher focused on sexualities, gender, religion, and health in the lives of sexual, gender, and religious minorities. In this post, I elaborate on the background and creation of the novel after many colleagues and friends have asked about its origins over the past few months. For more information about the novel or to purchase it, see here.

Background

I was sitting in a hotel lobby with a colleague I deeply admire and appreciate. We were talking about all kinds of things related to life, relationships, research, activism, teaching, and the world, and my colleague asked a question about the novels I completed in the preceding months. The topic was especially relevant at the time since I had just submitted my first novel – Cigarettes & Wine – for consideration for the Social Fictions book series, and since my colleague had done me the favor of being the first person outside my little chosen family / inner circle to read the drafts of the first two novels I had composed. My colleague’s interest and support and feedback on Cigarettes & Wine at the time was and remains invaluable, but I also enjoyed just how hard I laughed when my colleague asked, “So, this was so real, I gotta know, is this you, your life, it is, isn’t it?”

I laughed because though I had not thought much about it at the time, I understood the question. The narrator of the novel is a non-binary, bisexual raised in a small town in South Carolina. So am I. The novel is set in the same geographic area where I grew up, and in a fictional town similar to the one that I grew up in. The events in the novel are all things that – both from my personal experiences, from interviews I’ve done over the years, and from a lot of the people who read drafts along the way – have happened to people and / or are familiar to people, and thus, they are real events. The novel is also written in first person more like a diary of sorts. I laughed because it was a reasonable conclusion that I could understand, but not one I thought much about while writing the book. I laughed because my colleague was incorrect, but not entirely incorrect.

My colleague was incorrect because the novel is entirely fictional – none of the characters in the novel are actual people and none of them are me. Each one of them are composites of many people I have met, observed, interviewed, had relationships with, and otherwise encountered throughout my life. Desperate for information on and experiences of bisexual (across the spectrum), transgender (across the spectrum), and poly (across the spectrum) people like me, and for even more information on lesbian, gay, asexual, intersex, kink, aromantic, and otherwise Queer people I admired, I began collecting the stories of everyone I could meet when I was a teenager. Like the narrator, I would fill up journals with fictional versions of my own life (i.e., how it might be in other contexts) and fill journals up even further with all these stories of sexual and gender diverse experience, lives, and realities that were hidden just out of sight all around me. Later in life, this actually ended up being incredibly useful training for life as an ethnographic, autoethnographic, content analysis, and interview-based researcher, and to this day, twenty years later, I still collect these stories every chance I get though now I do it both professionally and in my personal time. My colleague was incorrect because the novel is not a retelling of my own story on its own, but rather, it’s more like a mix tape created by integrating the stories of hundreds of sexual and gender diverse / Queer people I have been lucky enough to meet, learn from, and become inspired by over the years.

At the same time, my colleague was not entirely incorrect. While I do not exist in full in any of the characters or events, some of the events in the book are ones that I experienced as well. Similarly, I remember very well living two distinct, separate lives as a younger person wherein almost all my straight friends and most of my family had no clue (to my knowledge, though I learned last year I was wrong in at least one case) about half of my life, and wherein my Queer friends knew more about the rest of my life but were never part of interactions I had with the straight, cis, mono world at the time (except secretly on rare occasions). Further, there are little pieces of my personality, experience, and feelings as a teenager scattered throughout the book (i.e., a joke I like here, a place I hung out there, a conversation I had with someone here, emotions I felt in a tough or wonderful moment there, etc.), and in each of the main characters in the novel. As someone very close to me put it after reading an early draft of the novel, “You’re everywhere and nowhere in this story.” Put another way, the story is a mix tape of so many people’s stories, lives, experiences, and emotions, but I show up along the way as the curator of the collection hidden or embedded in this or that character or moment.

All these thoughts went running through my head as I sat in the hotel lobby with my colleague. When I finished laughing, I simply said, “No, it’s not my story or the story of me, but it is one of what are likely millions of possible stories of people like me or like us.” My colleague smiled, and asked what I meant. I said, “Well, I basically took all the stories of people like us – mine and yours included – and put them together the best I could into a collective narrative illustrated through the lives of a group of kids in the 1990’s.” My colleague laughed, and simply said, “How did you do that?”

Data and Methods

Integrating a wide variety of experiences is not easy, but luckily, it is what I do for a living as a researcher collecting and analyzing data sets of various sizes. I began writing the stories that would become Cigarettes & Wine in my twenties, but I failed over and over again to accomplish whatever I wanted at the time (I’m still not sure). I tried to write my own story, but I was never as good at that since I found other people more fascinating. I tried to write it as a mix tape like I finally did last year, but I don’t think I had the skill set for that kind of writing before years of doing research for a living. I tried to write it as a collection of disconnected journal entries from various people across the south, but it never seemed to work or flow well. I gave up on it and pushed it aside when I got the chance to go to graduate school and try to develop a career as a scholar, researcher, activist, and teacher. For eight years, while I published research, it sat there, a forgotten dream in the back of my mind.

When I decided to try it again last year with the support and encouragement of my life partner and best friend and after so many students suggested I should write a novel about all the stories I’d collected over the years, I approached the book as a research study and the stories I collected over the years – as well as my own experiences – as data for analysis. Though I was only beginning to learn about it at the time, this approach is actually a rather common one in arts based research movements and traditions. Despite the fact that, like the narrator in the story, I generally destroy my journals when I’m done with them because for some reason that feels good to me and they’re all made up fictional versions of life anyhow, I kept so many of the stories I collected from other people over the years and so I began to start reading back through them and thinking about remembering other ones and thinking about and making notes on my own experiences and those of other people. Like I do with research papers, I began looking for patterns in the stories, and setting aside things that multiple people had experienced, dealt with, witnessed, or otherwise felt or known as part of their lives. From this approach, I came up with a list of common events and experiences that appeared repeatedly in stories from people of varied sexualities, genders, locations in the south, religious backgrounds, family backgrounds, races, and other social characteristics.

Armed with these events as an outline for a narrative, I began creating characters based on integrating aspects of real people (say five or ten different people) into one whole character with thoughts, hopes, loves, fears, dreams, and personality quirks. Although they changed a lot by the end of the composition process, these character profiles allowed me to start narrating the events that were common in the stories. I initially tried telling the story from two other characters’ points of view before I finally got it to work with the narrator in the published version. I also initially started telling a story that spanned from the 1990’s to now, but this proved to be way too much ground to cover so instead I broke it up into two and then three outlined novels (the second is now composed and the third is in progress of composition at present). Once I had these raw materials (as I call them when I write research papers), I was ready to write the first rough draft of the story.

In the end, I wanted to accomplish three things with Cigarettes & Wine. First, I wanted a bisexual and non-binary focused story after spending so many years wishing I could find one – much less one set in the world I grew up in – as a kid. Second, I wanted a story where almost all of the character were Queer in one way or another and in different ways to illustrate the diversity of the amazing people I’ve met over the years who identify and live in so many different ways within the various umbrella terms we use. Third and finally, I wanted a real story that captured experiences of Queerness in the south, and as a result, I only used events in the novel that showed up in multiple people’s lives over the years and explicitly sought to capture beautiful and ugly, wonderful and terrible things that Queer people experience in our world.

Results

Whether I’m thinking about my journalism, my blogging, my research publications, my short stories, or any other kinds of writing I have done over the years, I tend to agree with the perspective that only audiences can judge the results of a given work. Personally, I feel like I accomplished the three things I set out to do with this novel, but now that it’s out, I believe that it will be up to readers to figure such things out.

Thinking about the responses and feedback of the people who were kind enough to do me the priceless favor of reading drafts of this work before now, I feel happy with the novel and I look forward to whatever comes next. There were some that fully praised the work, and others who did not like it much at all. There were some who thought it was too positive considering LGBTQIAP politics in America at present, and others who thought it was too negative in relation to the same. There were some who thought the novel should have ended five chapters or so earlier, and others who thought it should have gone on for a few more chapters to offer more detail, resolution, or other bits of wrapping up. For me, the fact that the reactions have spanned a diversity of opinions even among the relatively small pool of readers thus far suggests I may have got what I wanted – a real, complex portrait of the good, bad, and everywhere in between Queer people in the south experience. I don’t know if this is correct or how others will interpret the work, but I’m happy with it and that counts for something in my mind.

Instead of trying to ascertain any concrete result or metric, when I think about Cigarettes & Wine as a now published work available for purchase by anyone, I think about the stories that have and continue to inspire me, that others have kindly shared with me so many times over the past couple decades, that resonate with me in cases of both similarity and difference, and that speak to a much wider, more complex, and more varied Queer existence then I can usually find in academic or mainstream media portraits and publications.

I think about talking with people in different states about things like burner phones, secret notes and mixtapes, and stolen kisses in the shadows where no one would see alongside so many other ways people found / find to live their Queerness in spaces that try to erase it from possible options. I think about laughing with people of different races, ages, sexualities, and genders about awkward and sweet and sometimes scary moments when we first learned this term, that sexual practice, this type of toy or other material, or that type of intimacy. I think about listening to stories about first loves who are still together – sometimes openly now and sometimes still secretive for many reasons – 30 years later, first loves that died way too soon, first loves that fizzled for any of a million reasons, first loves who were “such a mistake” and others who were “exactly what I needed.” I think about violence that was explicitly directed at people for being sexual or gender diverse / Queer, violence that was simply tied to living in the south where guns and fights and poverty are often so visible and normal, violence that people heard about that shifted the ways they lived or felt in the moment, and violence that people were grateful for avoiding even when some felt guilty that they avoided it when others could not. I think about discussions of accidents related to coming out or being outed by others, related to four wheelers, related to the friend who died when a gun went off or when the three wheeler flipped in the field, related to cars on highways and alcohol from plastic cups, related to lack of sexual education, and all kinds of other accidents that occurred as people tried to figure out who they were and tried to figure out how to manage rural and small town cultures. I think about the conversations about the beauty of religion alongside the horror of religion alongside the fear and shame of religion alongside the liberation of religion depending on what religion, what location, and whether or not one’s Queerness was known to the religious. I think about the conversations about hateful families alongside the conversations about supportive families alongside the conversations about chosen families. I think about the conversations with so many more people who are out and open and relatively safe nowadays alongside the conversations with so many more who are still in hiding for one of a million understandable reasons who may or may not ever want to or be able to come out and live openly.

I think about all these stories and so many more, and for me, that’s what the book is about. For me, Cigarettes & Wine is simply the first of a series of novels I am writing seeking to honor, celebrate, mourn, and embrace all the different forms and experiences of sexual and gender Queerness I’ve seen in my travels throughout the south. For me, it is an attempt to share the good, the bad, the beautiful, the ugly, and in short, the complex wonder of the many different ways sexual and gender diversity play out and survive and even thrive even in places – like the Deep South – where we don’t often expect it or see it as openly displayed. For me, it is also an attempt to say to Queer people in the south – and especially the bi and trans and poly folk like me who rarely see ourselves in even LGBT academic and mainstream media coverage – that you are not alone, that there is at least as much beauty as however much pain you might be facing, that the pain you may face is real and not your fault, that the beauty and wonder you find in you and your friends and lovers is also real and worth celebrating and fighting for, and that in the both the best and worst moments of your life you are part of a much larger population, story, and tradition that has and will continue to survive and fight with and for you.

This week’s post is a reflection on the marches that occurred over the weekend from a Doctoral Candidate in a social scientific PhD program in the United States.

As I watch fellow women march in their respective cities, I am swept up in a mix of emotions: pride, encouragement, but most surprisingly to me: envy. I covet what these women have: identification as a woman; but mostly confirmation as a woman. As I reflect more, I think the show of solidarity by women across the globe highlights the loneliness I have experienced in my search for womanhood.

My formative experiences were shaped by my white peers. My adolescence was predominantly white, made up of predominantly white schools, and in predominantly white classrooms. My friends were white. My classmates were white. And thus, I came of age in an environment that valued whiteness over everything else. Including my experiences as a black woman.

Due to constant reminders from my family and friends, I knew I was black (And I knew I was a woman due to the way I conceptualized myself). I still know these things. But, my womanhood has always been secondary to my blackness. Whenever I was treated unequally, I chalked it up to racism. When there was no one who was interested in dating me, I chalked it up to racism. I’ve always been treated as black. But, I’ve never been treated as a black woman.

How this relates to my feelings about various Women’s Marches is still something I’m trying to work out. But, my initial thoughts are this: In every formative interaction, my blackness has superseded every womanly quality I have.

Now, at 29 – as I am finally coming into what I view as womanhood – I am still trying to reconcile what about womanhood makes me feel so disconnected from my peers. Those who I am supposed to feel a kinship with. I believe that answer can be found in the fact that as a black woman coming of age in white spaces, I experienced constant de-gendering. I must now struggle to find – and interpret – my womanhood, and what it means for myself. Thus – couched in a time when womanhood seems to be fiercely embraced, rallied around, and protested for – I find myself lost.

I often wonder if there are other people like me. People who are still searching for their womanhood amidst their ethnicity. Those who feel disconnected from other women who have found it – or who have never had to search for it in the first place.