Two year old Gavin, was born with Leber’s Congenital Amaurosis (LCA). There is no cure, but we are helping to try to change that. This blog was started within 48 hours of receiving his diagnosis, at 4 months of age. It documents the triumphs, struggles and joys of raising a child, who happens to be blind.

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Tuesday, June 30, 2009

Can we get an OK?

Just asking for a few good thoughts and prayers Gavin's way. His pediatric retina specialist at Children's Hospital LA is trying to get the hospital to "ok" the ERG. As many of you know, we are covered under his Dr, but not the hospital. His office is IN the hospital, which complicates matters.

I'm hoping his Dr. can pull something off. I don't even care if the HMO picks it up, we have a PPO option that I'd be happy to even pay 20% of the costs. Which works out to be a lot, but it will put an end to this nightmare and put us on the road to finding the exact name of the disease robbing his sight, and we can begin the blood work and be put on the right path to what his future will look like, options if any, etc. And the list goes on.

Let's hope this week brings us some closure to this 4 month long battle with our insurance.