Six-year old Katherine Belle has a progressive mitochondrial disease (NUBPL gene) that causes atrophy of the cerebellum, among other serious health issues.

Despite her sunny disposition and conquer the world attitude, the harsh reality is her body desperately needs a treatment that does not yet exist. There is no cure and zero FDA approved treatments for mitochondrial disease. We are racing against time to fund a treatment to slow the progression of her disease and save her life through research at the Children's Hospital of Philadelphia (CHOP).

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A true rare warrior with an extraordinary rare warrior family! Katherine Belle is magic! She deserves every opportunity for a full, healthy, joyous life! She fills my suffering heart with tremendous hope, and she is a champion! I will do all I can do to help fight alongside her!

We just recently came in contact with this beautiful family! Our twins also have Mitochondrial disease & one of them is in the clinical trial KB was on through the NIH. KB is such an inspiration! We hope to meet her soon!

I love this family even though we have never met in person! Katherine and her parents are true warriors. My son also has a genetic mutation in which there is no cure (much different condition). Speaking with Glenda inspires me and lightens my burdens. Seeing Katherine grow, learn and enjoy life fills me with hope. I pray for this family and hope that they have every opportunity to continue to fund research for a cure. I know what it's like as a parent to daily struggle with the reality that no cure exists. It breaks some of us down, and we need to look up to see true champions, like this family, pioneer treatments. I personally witness this family work so hard to educate and raise awarness about Katherine's condition. I am blessed to know them!
XOXO

It seems so unfair that such a beautiful child has had to endure so much. Katherine Bell is a fighter. Her determination, her courage, her drive and her sweetness melt my heart. Her parents are extraordinary. Their plight is not an easy one, the odds do not cooperate and yet they carry on, educating themselves about Mito, challenging the negatives , jumping hurdles, taking down walls, spreading awareness all while raising and spreading their hope and love for this precious child. True warriors, the three of them!

My daughter Eva also has Mitochondrial disease as she is one in 5 with her type. These children struggle every day just to do something we all take for granted. They smile through and tough all who come into contact with them. God bless sweet Katherine!

Keep fighting, Katherine! I'm battling mito, as well, though mine was caused by a severe medical injure 2 years ago instead of being genetic like most mito is, along with fighting lyme disease since the day I was born. I know how awful it is. You are a true warrior!