Friday, August 14, 2009

St. Louis - Part 1

The girls and I took a trip to St. Louis at the beginning of the week. Blair had to be cleared by the Pulmonologist and Anesthesiologist before her surgery this week.

Both appointments went great and they think she will do just fine for surgery. Of course they had to tell me all the bad stuff to cover themselves, but I tried to tune all of that out!

We will be leaving on Wednesday! I have no idea how long we will be gone. Hopefully just a few days, but that just depends on how well Blair does with the expander's in her belly.

I believe my Sister is keeping Baylee for us. Being that we have to be at the hospital Thursday morning at 5:30 I really don't think she would do well for that! Plus, she starts preschool next week and is SUPER excited!

Katy... totally agree with you. I mean, we could put this off a couple of years, but by then she will be a lot bigger. And, then there are risks of having to do multiple tissue expanders. UGH! I would rather get this done and over with and concentrate on Baylee. I feel like I'm going back and forth with them.

Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!