What Is HD?

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.

Find Help

Locate HDSA Chapters and Affiliates, Support Groups, Social Workers, and Centers of Excellence in your area as well as additional local medical, legal, social, and therapeutic resources for people with HD and their families.

HD Research

Since 1999, the Huntington’s Disease Society of America has committed more than $20 million to fund research, with the goal of finding effective treatments to slow Huntington’s disease. Our research efforts have helped to increase the number of scientists working on HD and have shed light on many of the complex biological mechanisms involved.

Healthcare Professional resources

This section includes online courses for physicians, social workers and therapists who care for people with HD at the local level. Courses deal with cognitive, physical, therapeutic, technological and legal HD issues among other topics. This section also includes reference materials in video and PDF format for Social Workers on HD issues listed by varied categories.

GET INVOLVED

When Marjorie Guthrie founded our organization in 1967, her vow was to “do something” about this devastating disease. Today we continue her legacy by bringing together the entire community to provide help and hope to all families affected by Huntington’s disease. Listed here are some of the ways you can get involved in the fight against HD.

Friday

Saturday

HOTEL INFORMATION

Registration for Convention does not ensure a room reservation at the Boston Marriott Copley Place in Boston, MA. You must make your room reservations separately.

Due to an overwhelming response only select nights are available at the $159 rate. HDSA has secured another room block at the same hotel at $269 per night (plus Tax). We strongly urge you to call the hotel directly at 1-877-901-2079 to make you reservation as you will need rooms from both block to attend all days. If you wish to view availability online please visit the following sites

Transportation

We have partnered with United Airlines to offer travel discounts to our event. Visit http://www.united.com/meetingtravel and enter ZGN9128996 in the Offer Code box. You may also call United Meeting Reservation Desk at 800-426-1122 Mon-Fri 8am – 10pm ET and Sat/Sun 8am – 6pm ET. Booking fees are waived for Meeting reservations.

2018 HDSA Convention Recap Video

Check out the sights and sounds from our 33rd Annual Convention which was held in Los Angeles, California, June 7-9, 2018.