HSF Patients

Jasen

asen, from India was born prematurely at 27 weeks and suffered from extreme low birth weight. A couple of weeks after he was born, his parents noticed a swelling on his cheek, and he was initially misdiagnosed as having a hemangioma.

He came to the Hannah Storm Foundation nearly a year later when it was discovered he actually had a vascular malformation, a condition that almost caused him to lose his vision.

Sloan McGillis

Sloan McGillis came to the Hannah Storm Foundation from Montana. This sweet little girl is in need of surgery to treat a severe hemangioma and legion on her cheek.

To date, Sloan has undergone two surgical procedures performed by Dr. Milton Waner at the Vascular Birthmark Institute at Lenox Hill Hospital in New York City.

Funding for Sloan’s surgery was made possible by monies raised at the foundation’s annual fundraising event through a special “Fund-a-Need” program where guests were able to donate directly to a fund set up for Sloane and other children who suffer from various vascular anomalies.

Prince Phakathi

Prince came to the Hannah Storm Foundation from South Africa. He was in desperate need of surgery to treat a severe lymphatic malformation of his eye and cheek. Without the procedure he was at risk of losing his eye.

The procedures performed included a lymphagioma of the left cheek and left orbit, and excision and repair of the left lower eyelid and orbital lymphagioma. Dr. Milton Waner performed the surgeries at the Vascular Birthmark Institute at Lenox Hill Hospital in New York City.

Funding for Prince’s surgery was made possible by monies raised at the foundation’s annual fundraising event through a special “Fund-a-Need” program where guests were able to donate directly to a fund set up for Prince and other children who suffer from various vascular anomalies.

Natalia Sardlishvili

Natalia, 2, came to the Hannah Storm Foundation from the Republic of Georgia. She suffers from a large segmental hemangioma over the left part of her face, neck and head. When she was one month old she had an ulceration of her lip, nose, ear and neck.

In Natalia’s country there are no laser treatment options and many of the doctors are not familiar with vascular anomaly conditions. Natalia’s mother originally found the Waner Children’s Foundation through the Internet and through their generous support; Natalia was able to receive laser treatment at the Center of Vascular
Malformations in Children (ZVM) within the Clinic for Pediatric Surgery at St. Joseph Hospital in Berlin, Germany. This yielded automatic results.

Dr. Waner performed an additional two laser surgeries, but Natalia was going to need three more laser treatments, in addition to reconstructive surgery of her nose and lip as a result of the earlier ulceration procedure. With the help of the Waner Children’s Vascular Anomaly Foundation, Natalia’s mother then found the Hannah Storm Foundation through the Internet and reached out for support.

Thanks in part to generous supporters of the Hannah Storm Foundation at an annual fundraising event, the Foundation was able to raise money through a special “fund-a-need” to pay for Natalia’s remaining surgeries.

Tingyi Yan

Tingyi Yan, 2, from China – the first patient of the Hannah Storm Foundation has undergone nine surgeries since 2010. He first came to the Foundation at the age of 6 months and needed multiple surgeries to reduce the redness caused by a Port Wine Stain birthmark on the left side of his face. All of the surgeries have been performed byDr. Milton Waner at the Vascular Birthmark Institute, previously located at St. Luke’s Roosevelt Hospital now at Lenox Hill Hospital in New York City. Tingyi had two additional treatments in January and February of 2012. He had additional surgeries in September and October of 2013 bringing his total number of surgeries to 14.

Tobija Zabret

Tobija, 9 months, from Kranj, Slovenia – through an affiliation with the Center for Vascular Malformation in Children (ZVM) in Berlin, Germany, Tobija underwent surgery for a Port Wine Stain birthmark on the left side of his face. This type of vascular anomaly is treated using a special laser (pulsed dye laser). Dr. Milton Waner performed multiple surgeries that were funded by the Foundation.

Allison Sciaraffa

Allison, 7, from Wareham, Massachusetts – worked with the Hannah Storm Foundation for support in funding her last surgery in a series of procedures to remove a partially involuted hemangioma on her lower lip. The surgery was performed in 2010 by Dr. Milton Waner at the Vascular Birthmark Institute at St. Luke’s Roosevelt Hospital in New York City.