Thursday, April 29, 2010

Moving up........

The DSA results brought fantastic news! Mason's antibody levels have significantly dropped! The percent of rejecting antibodies left in his blood right now is very low. Hooray!! The Donor Specific Antigen test (only done here at Stanford......and soon to be used at other transplant hospitals) shows the specific bad antigens that Mason's body is fighting against. 2 weeks ago he had 8 of those and in very high percentages and now he only has 1!! And the amount of that 1 in his blood dropped 92%. That is HUGE! A huge miraculous drop of those mean nasty rejecting antibodies!

I love good news!!!

Tomorrow Mason will move up to 3 west, the recovery floor for cardiac and transplant patients. This means he does not need ICU care any more!! This also means Mason and Mommy can share a big bed (Okay, a twin is not big, but at least bigger than an ICU crib!) and we can have our own bathroom too. Hopefully, Mason can at least get a little better rest up there, especially w/ Mommy cuddling him to get him to sleep!

37 comments:

Yippeeee!!! Mason has got to be one of the bravest little guys around! To be so young and to not understand all that is going on must be so hard. Of course, having such a fabulous Mommy makes all the difference I think! It has been such an honor to follow this miracle for the past four weeks. Thank for sharing it and for increasing my own faith in miracles through your sweet baby boy!

Way to Go MASON!!!!!!!! Enjoy mommy time, and the more comfortable bed. A twin is much better than the cribs. I am glad that the Lord is hearing the prayers of so many across the nation and world. Quick stepping Mason. Soon you will be home in your own little bed. :)

I Love it when Heavenly Father answers our prayers!!! I am SO happy for you! Hoping that this was the last bump in the road and that recovery will speed up now and you'll soon be out of the hospital!BIG HEART HUGS to you both!!!!!

Summer, you don't know me, but we share a little in common. I first heard about you from Paul Cardall and am just getting around to checking your blog. My heart is so full of every kind of emotion! You are so strong and little Mason is so precious! I will continue to pray for you, Mason and your family!!!

My daughter had open heart surgery at 6 months to fix the sub aortic stenosis, and patch a VSD. As a result, her hearts natural rhythm never came back and she has an artificial pacemaker. Four pacemaker surgeries later, and 10 years later, she is doing wonderful. As you must be doing, I thank the Lord everyday for allowing me another day with her, on Earth. :)

Although he doesn't know us, give him a big hug and tell him to continue to rock on! I hope we'll be able to meet someday.

Celebrate, Celebrate. It is back in the category of big step miracles. Such good news! Moving up in a hospital setting is so encouraging not to say anything less about all those good numbers, but when they don't want you in the ICU any more you know YOU HAVE ARRIVED. Little steps and little steps and then it will be time to leave and all you will have to do is wean the miracle boy from sleeping with mom. Lovely to think of the day when that would be the only challenge.

Snuggling in a hospital bed still rates as one of my favorite 'hidden' joys! I am so glad you are getting out of ICU and one step closer to home. Praying for continued recovery, acceptance of the heart and healing.

Absolutely amazing numbers!!! What a tough little fighter. My daughter's family with Mr. Owen is leaving in the morning for LP. They will be so glad to finally meet you! The prayers won't stop...Mason's come a long way and so have his parents! Love to you...Owen's Gramma

Yeah!!! Dr. Whiting gave me this update today and I could not be more thrilled!!! Miracle Mason proves yet again that miracles happen, even today. Heart hugs,Emily*I keep thinking of the song "Movin' On Up"!!!

There has been a trust fund set up on behalf of Mason Andrew Strickland. You can donate by calling or visiting any Wellsfargo branch.https://www.wellsfargo.com/locator/OR by clicking on the "Donate" button below.

Mason Andrew Strickland was born on November 30, 2007! He came 3 weeks early at the American Fork Hospital, weighing in at 5 lbs 8 oz . He is the baby brother to 3 brothers and 1 sister. At 3 days old he became very sick at home. After a trip by LifeFlight to Primary Children's Hospital that afternoon he was diagnosed with a variation of Hypoplastic Left Heart Syndrome. Mason will need at least 3 open heart surgeries before he is 3 years old. He had his first surgery when he was 10 days old and spent 7 weeks in the hospital. He had his 2nd surgery at 6 months old and only spent 1 1/2 weeks in the hospital. Mason also has issues with arythmias which has caused him some scary moments, a 2nd trip by Life Flight, and more time back at Primary's PICU. We feel blessed for everyday we have him here with us. We have created this blog to follow our journey through life with our little broken hearted baby, Miracle Mason (with a few tid bits about the rest of the family too).

It's now October 3, 2009 and Mason's story needs be updated. In April 2009 Mason was diagnosed with lowered heart function (or heart failure). From April through now he has been on medications and oxygen to help improve his heart function. In August, with no improvement seen in his echos we began the process to list him for a heart transplant. He is unable to get the 3rd surgery (or Fontan) as planned because of his heart failure. On Sept, 3, 2009 he had his pre-transplant Heart Cath (the last thing needed to list him for a new heart). The results that day have left us heart broken. He was diagnosed with severe pulmonary vein stenosis and is unable to receive a heart transplant. He will now need a heart-lung transplant, if he is a viable candidate. Since Primary's does not have a heart-lung program we are seeking opinions from other hospitals (outside of Utah) at this time. Even though we are extremely saddened with his most recent diagnosis, we continue to find joy in our journey with our special child of God, our sweet Mason.

(In November 2009 we learned of another possible option for Mason. CHOP and Stanford have both talked to us about doing just a heart transplant to his own one healthy lung. At this time we are exploring that option and the possibility of it being another true miracle for "Miracle Mason".)

February 16, 2010 Mason and I (Mom) flew to Palo Alto, California to do a few last tests and get Mason listed for a new heart(heart only!! not heart-lung!!) at Lucille Packard Children's Hospital at Stanford. We are excited and nervous to start this new chapter of our journey.

March 3, 2010 Mason was officially listed on the Heart Transplant waiting list as a 1B status. Mason and I will wait here in Palo Alto until he receives the miraculous gift of a new heart. We miss our family at home very much!

April 4, 2010 (Easter morning) Mason received his new heart. It was the best Easter gift our family could ever be given. We are eternally grateful to his donor family who during their time of loss selflessly gave our Mason a second chance at life.

July 16, 2010 Mason and Mom flew home to Utah to reunite with their family. Mason is still very immunosuppressed in order to avoid rejection of his new heart, but definitely happy to be home playing w/ his brothers and sister!!

January 30, 2012 Mason continues to do well with his new heart. He finally came off of steroids after 18 months in October 2011! Mason is walking with the help of a walker in hopes to walk alone soon. He conitues to have a few episodes of a pneumonia each year, probably due to only having one working lung. He also has a few new issues we are facing .....sleep apnea and severe scoliosis. But, over all he continues to face life with a fight and a big smile!

April 11, 2012 Mason had back surgery because his scoliosis had worsened to a curve of 75% (normal is 0-15%). He had two rods placed in his back, better known as the VEPTR (Vertical Expandable Prosthetic Titanium Rib). It was a rough recovery, but after about 8 weeks he was feeling much better. Every 6 months he will go in for a minor surgery to extend the rods to keep up with his growth.

May 25, 2012 We finally got into a sleep doctor and she diagnosed Mason with sleep hypoxia, rather than actual apnea. Because of narrow airways his sats dip frequently through out the night, but he doesn't completely stop breathing (good news!). So he was perscribed to be on one liter of oxygen at night while asleep.

July 20, 2012 Mason finally walks all on his own!!

Not a day goes by that we don't think about Mason's donor family who has given our little miracle boy the gift of LIFE! Thank you where ever you are!