Thursday, December 27, 2007

Next Step - 16th March 2007

We had an emotional journey that your worst dream as a child did`nt come close to explain the fear of which lay ahead. For the next 5 months we were scanned every 2 - 3 weeks to check how well the organs were developing and more significantly, if any more organs had moved up into the chest.The sonogragher also did a measurement of the head to lung ratio-and said the baby was 1;4 ratio and anything under 1 was normally not good.She also said it was the only to give us a ruff guide as to how things looked for the future at birth and things could change between now and the birth. They also examined the babys heart as it had shifted over to the right because of the obstruction in his chest.Unknown to us the month before he was born the sonographer said she could see something else in the chest,but couldn t make out if it was lung tissue or what it was.Our next step was a 'MRI' Scan which would give us a better idea.We went for the 'MRI' Scan 3 weeks before he was born - but didn't get results till the week before he was born,due to the fact one of the doctors was on holiday and there had to be 2 doctors go over it thoroughly.Then our worst nightmare came true - there were more organs in the chest pushing on his lungs and leaving little room for his left lung to develop.

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'Kadens Journey'

This about our unborn son Kaden who was diagnosed with a diaphragmatic hernia known as CDH while in my womb at 18 weeks.After hearing about the condition and all possible outcomes we decided to give our baby the best chance in life.The doctors gave him a 50/50 chance of survival.Knowing our unborn baby had a long fight ahead we picked a name for him with a meaning - Kaden means ;fighter and he did exactly that.At 37 weeks gestation we had a MRI scan to find most of our babys organs were in his chest - his stomach,spleen,left lobe of his liver,bowel and intestines.At 39+1 weeks Kaden was born by c-section on Wednesday 25th July 2007.Kaden was operated on at day2 to have his organs put back where they belong.After an emotional 6 weeks of which Kaden spent 4 weeks in intensive care and a further 2 weeks in the Neo-natal.Kaden was allowed home on the Wednesday 5th September 2007.Kaden has had 4 operations in all - 1 lifesaving op at day 2,1 fundo and gastrostomy and 2 hernia repairs.Although Kaden has feeding issues - we are so proud of 'Our Special Little Boy'who continues to thrive every day.And we are so Thankful to have 'Our miracle'.