Monday, June 23, 2014

Hello
S.A.I. supporters.....Just wanted to check in and let you all know the
progress of Shanyna's Illness...Shanyna returned to Johns Hopkins 3
weeks ago to see what progress she had made...She and her mom were very
disappointed at the news she received from the doctors...They stated
that one of the many many Meds that Shanyna was taking to try and clear
up here skin had actually made her skin worse...After
being on it for 2 and a half years and It has only helped her face
.They also explained that she was becoming very dehydrated and (even
though she drinks a whole lot of water everyday) there is no oxygen
getting to her skin once again and without the oxygen her skin is
suffocating and it makes her body temperature rise high keeping her
very very hot all the time now...she is still in a lot of pain and now
sleeps most of the day away to avoid feeling the pain as much...They
also told her that she needed to return to Johns Hopkins in 30 days
because they will be setting up another sit in conference with about 75
doctors that will examine her from head to toe and then excuse her out
and start discussing her case amongst them all...They will then come up
with another solution and treatment plan to start her on again...Shanyna
cried as she heard the news and begin asking the doctors why she
couldn't get the laser surgery where they could kill her hair follicles
since they were already damaged badly so that she could get some relief
from the stems (nails)...They replied that that could not be an option
due to it being a form of light treatment which harmed her once
before...she then got frustrated and started scratching and making her
nerves very very bad....We have to keep close watch on her because any
little thing can trigger her nerves off and she will get depressed
really quick....she is already down and depressed about not having the
funds to make it on June 26...She doesn't want to ask for donations
anymore because she said that it makes her look as if she is begging and
bothering people....We have to understand where she is coming from with
this one..one minute being a independent person having everything an
adult is suppose to have and do...she had her own place...worked 2 jobs
and was in school full time to only get sick and loss it all....If that
wasn't bad enough her mother job did her wrong as well and added
additional stress to their situation. ..Her mother's job found out about
Shanyna being ill...so they did a fundraiser for Shanyna and raised
over 5 thousand dollars for her to go out of the states to get help else
where because Memphis hospital had no more sources to help her...once
Shanyna and her mom arrived in Baltimore and made it to Johns Hopkins
ER....within 10 minutes of being there they had admitted her in Critical
Care....when her mom called her job (that she had worked for over 16
years) and explained what was going on...her supervisor then asked her
how long would they be there and could she leave Shanyna in a state that
she knew nothing about by herself so that she could return to
work....they wanted her mom to pick between staying and helping her
child or leave Shanyna their alone with no family or anything and return
back to work...Her mother couldn't believe what she had been asked to
do but her mom picked without a doubt or hesitation to stay with her
child....they then fired her mom 2 days later sending her pink slip to
her Memphis home without anyone calling and telling her she had been let
go...She was so hurt that they let her go for picking her child knowing
that they need all the funds they could get...Also at this time Shanyna
was just a Vegetable....she couldn't do nothing for herself and they
wanted her mom to pick her job over her child...Sad thing about it when
they let her go they had only been in Baltimore 3 days...she then filled
for unemployment thinking that that would help them out with a little
income but she was denied due to the fact that they said it was
considered a voluntary leave....her mom then losted her home her truck
and her source of living all at 1 time....Shanyna cried day in and day
out because she felt it was her fault her mom lost everything but her
mom explained to her all the time that she did what was best for
Shanyna...she said a mother's love comes before any job....she said stop
worrying about what I lost for that was all material things that can be
replaced...She said do I look worried...I know the Lord above don't
make mistakes and that this was just a test of faith...She then grabbed
Shanyna's hand and asked her do she trust and believe...Shanyna looked
up into her mother's eyes filled with tears and said yes I believe...she
told her that life is not perfect and we have to make the best of
it...she said they told her Shanyna will never walk again but she's
walking on her own now...she couldn't eat and was losing so much weight
to fast but now she is back thick and juicy and eating very well...she
told Shanyna stop dwelling on the bad and focus on what's to come...so
with Shanyna's mom saying these things and staying positive believing in
the Lord...she explained that the Lord has Shanyna's best interest at
heart...lets come together and raise the funds that she really need to
make it to hospital in 3 weeks...Just click on the link below and follow
the steps....We really thank you so much for your time and love...God
Bless....Amen!!!!!!! PLEASE VISIT ONE OF HER SITES TO HELP SHARE A BLESSING TO SAVE HER TODAY:WWW.SAI-FOUNDATION.NET -MAIN WEBSITE (YOU CAN ALSO DONATE ON THIS SITE AS WELL)WWW.GOFUNDME.COM/SHANYNA-ISOM -HER DIRECT DONATION WEBPAGE

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HELLO WORLD.....MY NAME IS SHANYNA ISOM OF MEMPHIS, TN....I AM A 28 YEAR OLD FEMALE WHO WAS A FULL TIME STUDENT AT THE UNIVERSITY OF MEMPHIS AND A FULL TIME BEAUTICIAN WHO IS SUFFERING FROM A SERIOUS UNKNOWN ILLNESS……IT HAS TAKING ALL OF MY HAIR OUT AND HAS LEFT MY BODY WITH SCABS ALL OVER IT PLUS I HAVE LOSTED ABOUT 200 LBS....... TWO YEARS AGO I WAS A HEALTHY WOMAN ON MY OWN.....I HAD BIG DREAMS AND GOALS THAT I WAS FOLLOWING UNTIL ONE DAY MY BODY COMPLETELY SHUT DOWN ON ME.... I HAD AN ASTHMA ATTACK AND WAS SENT TO THE EMERGENCY ROOM..... ONCE I GOT THERE I WAS GIVEN STEROIDS WHICH STARTED ME TO ITCH UNCONTROLLABLY...... I WENT BACK TO FIND OUT WHY AND THE DOCTORS TOLD ME I WERE HAVING AN ALLERGIC REACTION TO THE STEROIDS AND PRESCRIBED ME SOME BENADRYL...... IT WORKED FOR ABOUT A DAY THEN THE ITCHING CAME BACK STRONGER THAN EVER AND I STARTED BREAKING OUT ALL OVER MY BODY....... I ENDED UP GOING TO A DERMATOLOGIST WHO RAN EVERY TEST ON ME THAT COULD POSSIBLY BE RAN BUT EVERYTHING CAME BACK NEGATIVE..... SO FINALLY HE DECIDED THAT IT WASN’T MUCH MORE HE COULD DO AND SAID THAT I WOULD BE LIKE THIS FOR THE REST OF MY LIFE…….I STARTED GOING TO DIFFERENT DOCTORS AND THEY TRIED DIFFERENT TREATMENTS AND SURGERIES BUT EVERYTHING SEEM TO GET WORST.....AS TIME PROGRESSED MY ILLNESS GOT SO BAD THAT IT AFFECTED MY WALKING ABILITIES AND VISION.....THE DOCTORS IN MEMPHIS HAD GIVEN UP ON ME AND TOLD MY FAMILY THAT THERE WAS NOTHING ELSE THAT COULD BE DONE......SO MY FAMILY BEING THE STRONG MINDED CHRISTIAN BELIEVERS THAT THEY ARE THEY DIDN'T TAKE NO FOR AND ANSWER....THEY TOOK EVERY PENNY OF THEIR SAVING AND SENT ME TO DIFFERENT HOSPITALS THAT SPECIALIZE IN UNKNOWN ILLNESSES.....I HAVE BEEN TO SOME OF THE BEST TOP NAME HOSPITALS IN THE U.S. ..I EVEN HAD A DOCTOR IN THE NETHERLANDS WORKING WITH ME... BUT EVERYWHERE I WENT ALL I GOT WAS "THEY NEVER SEEN MY TYPE OF ILLNESS BEFORE" IT MADE ME FALL INTO DEEP DEPRESSION.......I KEPT FEELING LIKE I HAD NO CHANCE OF EVER GETTING THE HELP I NEEDED....RIGHT WHEN I THOUGHT I WAS AT THE END AND WANTED TO GIVING UP "MY GOD" SHOWED UP AND ANSWERED MY PRAYERS.....I WENT TO A NEW PCP AND THE DOCTOR TOOK ONE LOOK AT ME AND TURNED TO MY MOTHER AND SAID GET HER TO JOHN HOPKINS HOSPITAL ASAP......WE WENT HOME AND PACKED AND CAUGHT A FLIGHT THE NEXT DAY......I CHECKED INTO THE HOSPITAL IN AUGUST OF 2011 AND I AM THEY TOP STUDY RIGHT NOW......THE PROBLEM IS THAT THE TREATMENTS ARE GOING GOOD(EVEN THOUGH MY ILLNESS IS STILL UNKNOWN) AND I FEEL 25% BETTER BUT IT IS HARD TO GET BACK AND FORTH FROM MEMPHIS TO BALTIMORE.....WITH THE TREATMENT SCHEDULE THEY HAVE ME ON NOW I HAVE TO GO THERE ONCE A MONTH UNTIL I AM OUT OF THE CRITICAL STAGE.....PLEASE! PLEASE! PLEASE! IF THERE IS ANYONE ONE OUT THERE WHO CAN HELP ME IN MY TIME OF NEED PLEASE LEANED A HELPING HAND OR KNOW OF ANY FOUNDATIONS PLEASE CONTACT ME IMMEDIATELY .......THANKS FROM THE BOTTOM OF MY HEART....SHANYNA ISOM