“I suffer from the motor form of an autoimmune disorder called chronic inflammatory Demyelinating Polyneuropathy (CIDP). The treatment for this involves bi-monthly six-hour infusions of IVIG (Gammaguard).

In April 2010 after approximately two years of infusions, I was informed by my insurance company, Anthem BCBS, that I had reached my lifetime maximum [coverage limit] and that they would no longer pay for my treatment. Two appeals to Anthem and one to the State of Connecticut Insurance Department failed to reverse this decision. After a few months with no infusions, I started to go into a rapid health decline.

The only thing that ultimately saved me was the ACA’s elimination of lifetime limits that went into effect in January 2011. I fear that the proposed repeal and replacement of the ACA will have devastating effects on my ability to maintain these medically necessary infusions and dramatically impact my life…”