The BARD-online website is free of charge for patients and clinicians. The goal of BARD-online is to provide a web-based platform to accelerate the clinical and basic science research of newborn liver diseases and to give opportunity for knowledge translation. By facilitating the establishment of a large uniform patient data-bank and bio-bank to study rare newborn liver diseases, the BARD-onlineinitiative aims to improve the outcome of patients affected by these rare pediatric disorders.
For patients and their relatives, BARD-online provides reliable information about neonatal liver diseases, lists of highly specialised centers and pediatric liver units around the world as well as a forum of self-help groups for each particular disease.
In order to help you find helpful information about these rare newborn liver diseases, BARD-online will provide you with a comprehensive information and as well as a platform for family communication.
Sponsorship to support BARD-online will help us achieve our goal to improve the outcomes of patients affected by rare newborn liver disease. It will also allow us to maintain this novel and modern tool for innovation, knowledge and communication.
Every donation is highly appreciated and your generous contribution will be acknowledged in our donor list, here.