Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

i think it might be..

i have horrible horrible cramps. its so painful i start sweating and seriously feel like i'm going to pass out. i can't even stand up straight. i've been having sex for a year and a half and haven't got pregnant yet. it hurts to have sex its a bad stabbing pain. could it be endo?

yeah i'm going to the doctor tomorrow to try and find out whats going on. what exactly do they do to check and see if you have it and if i do have it do you always have to have surgery for it or is there other ways to treat it? i mean surgery doesn't really bother me. as long as it fixes things i'm fine with it i'm just wondering if theres other things they do.

It really depends on your dr. The only way to positively diagnose endometriosis is a laproscopy, although there are symptoms that can give you an idea. The problem is that symptoms of endo are also symptoms of other problems as well.

Just be cautious with your dr. I was having similiar symptoms as you as well as other things, but my original gyno just wanted to prescribe me depression meds and told me there was nothing wrong with me. If your dr. pulls that find a new one. A lot of dr.'s really don;t understand endo even though they are gyno's. A lot of gyno's only seem to want to deal with the pregnancy side and not the actual reproductive system side.

The other thing I want to mention is that they will probably do an ultrasound first to look at your ovaries. Sometimes endo and many other reprodctive diseases will leave cysts on your ovaries and these can sometime be detected through the ultrasound.

I am sure you have got some advice by your doctor so may be my advice will be no good but I thought I'd share my thoughts with you anyway. Unfortunately it sounds very similar to my symptoms, so it does sound as if you have Endo. The other way to tell is if your periods are erratic and heavy as that is tell tale signs of Endo. but of course it could be other things but your doctor will do tests to rule other things out. You see if you suffer with bowel problems such as irritable bowel syndrome it can also cause pain during sex, so bowel disorders such as Chrohn's and celiac disease have to be ruled out first. Just to warn you though Endo can be misdiagnosed as well as taking years to get a proper diagnosis of having Endo as not a lot is known about the disease apart from the fact they have linked it to being hereditory. When I first got really poorly they insisted it was my irritable bowel syndrome playing up. But I know it was definitely something gynaecological as I bled all the time and had really heavy periods, so sometimes I think we know our bodies better than the doctors. Also in your case you have been trying for a baby and not had any success yet so it does indicate some fertility issues but of course it could be that you have to disifer if it is you or your partner with the medical issues preventing this happening. I hope it is something simple like polycystic ovaries as they can give you medication to help you concieve. Of course i bet you prefer to have nothing wrong but I am sure you want answers to why you are not conceiving. Anyway I hope all goes well and let us know how you get on and what the doctors say. If you have any other questions don't hesitate to ask.

Sounds like endo. Endo has many ugly symptoms, and some of the symptoms can be so light that you pass it off as other things. The Doctors give you a LAP to see if you have endo. But as one of the other girls stated, sometimes it can take several years of going back and forth from doctor to doctor until you find out that it is endo. I wish you the best in all of this, and pray that it isn't endo, and hope that it's something else that isn't serious and can be corrected as easy as possible with no side effects. If you ever need to talk or have any questions, we are all here for you and willing to help. I know for me, this site has been such a blessing. Some of my symptoms were to embarassing to just talk to with my mom or family and friends. Having this site and the people here, makes it a little easier to open up and talk about the symptoms and what endo does to a girl and her relationships. If you have any questions, message me and I will let you know what I know and what I have expierenced from having endo. Hang in there!!

Go to Web Md and check it out... there's so much to explain that we can't put it all in here. Yes, it can affect fertility, but if you have it, surgery is usually helpful because it eliminates blockage and such and makes it easier to get pregnant, or if you don't want to get pregnant, birth control can help illiviate symptoms until you are ready to. My best treatment has been surgery followed by depo provera until my symptoms return, then surgery again. Without Depo, my surgeries were a year and a half apart, with it 3-4 years.

well i went to the doctor today and she put me on birth control. i have to go somewhere on the 16th and get an ultra sound to check my ovaries i think she said to see if theres any built up tissue on them..so hopefully the birth control will help. and i hope nothings wrong with my ovaries i can't wait to find out though so i can get something done about it if theres a problem.

Endo is microscopic and rarely is the actual disease viewable on an untrasound. A biopsy of tissue found inside your pelvic cavity can confirm you have it, but any other test is not for certain. They insisted I was fine until laparoscpy (where they insert a tube into your belly button, view your abdomen and burn anything that is a blackish endo lesion, any attached things with endo etc.). When they finished my surgery they told me I had it, they removed it and there is no way of knowing if you can have children in most cases until you try. Hope that helps.

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