A mother's account of how her two lovely children (Joy&Joseph)inspire her daily to succeed. Hopefully this blog will create more awareness about downs syndrome and prematurity. Most importantly, to become a positive resource/journal for families blessed with children with special needs in the UK and beyond

Saturday, 17 November 2012

To raise more awareness about prematurity in support of the world premature day, I have decided to share a bit more about Joseph's premature birth. I remember just like it was yesterday my son’s premature
birth. We planned Joseph’s pregnancy because we wanted a sibling for Joy so
that the close social interaction will help her a lot because her learning disability. Throughout Joseph’s pregnancy
I was placed on consultant care because doctors felt that my chances of having
a child with downs syndrome again was high. So I had lots of scans and checks. As a dedicated christian, prayers and supplications were not left out of my daily life. Everything
went well until my six month when I developed a serious urine infection. After I
was discharged from hospital and back home, my baby bump started to over-grow like
I was having twins, a condition called Polyhydramnios. It is a medical condition describing an excess
ofamniotic fluidin theamniotic sac. The effect of this condition includes breathlessness and premature
labour. Approximately two months to my due date, my waters suddenly broke while
I was doing some household chores. It was almost unbelievable that I thought I might be having a miscarriage of some sort. I was taken into city hospital in Nottingham in
an ambulance. I was then given some injections that was capable to delaying my
labour in order to better my baby's chances of being born closer to his due date. Well, after 3 days in
hospital, Joe was delivered through an emergency C-section because I was in such
an excruciating pain that doctors felt my life could be in danger if the
operation wasn't carried out immediately. I was given full anesthetic so I didn't witness when Joe was delivered if you know what I mean. Doctors told me that he wasn't breathing when they brought him out and they had to resuscitate him.

After Joe was born, he was
kept in the incubator so he ad so many tubes around him. Looking back now, I really
salute Joseph's bravery because I've got needle-phobia and Its amazing how he tolerated
the countless needles and blood tests. Not forgetting that he had to have his
feed intravenously. Myriads of medical conditions were mentioned by doctors at
the time including the fact he kept catching one infection or the other. Seriously,
I don’t even know how I managed through that difficult period. My typical day
was within the walls of the hospital as I rarely left the hospital for six
months till the day he was discharged. I would express my breast milk because I wanted
to ensure he had that from me since he wasn’t strong enough to feed himself.

Joseph had uncountable medical investigations and tests because his diagnosis wasn't straight forward. As for me and my husband, we just took every single day as it came because there was so much information
to take in. Not forgetting that Joy (Joseph’s big sister has special needs too). I’m
definitely summarizing my experience because I will need more than a thousand
pages to recount my experiences. An aspect like the time joseph’s bones kept
breaking because his bones were too brittle and there was no medical reason to
explain why. We really went through so much. I’m not even sure I want to
remember some of my really challenging moments. Maybe I will in future when I have more time in order for me to inspire other mums and dads out there. One thing I can
say from my experiences is that its so important you love your children
irrespective of how they came, early or not, disabled or not. You won’t believe
how these children impact your life positively.

My children have impacted my
life positively; I feel I’m a strong woman today because I have them. I even
run my own business today despite how chaotic my life can be with the numerous hospital
appointments and therapy sessions! I’m so grateful to God, my family, the
wonderful doctors and nurses who cared for my little miracles, Joy and Joe. To everyone who said a prayer for us, thank you so muchJ

Saturday, 20 October 2012

1st photo-My first cuddle with Joseph, he's still in the incubator here
2nd photo-Joseph's 3rd birthday
My handsome little man, Joe was born via an emergency cesarean section two months early. After six months in hospital, Joseph was finally discharged home and he's never been back to hospital since then. I've been procrastinating writing about Joseph for a while because I wanted to share my experiences about Joy first. However, I came across a lovely blog http://notevena.blogspot.co.uk/ and this lovely blog inspired me to share Joseph's old picture, never been released before! Hopefully, in our own little way, we can inspire others and create more awareness about the world prematurity day.

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About Me

Hello, thanks for popping over to my new blog. I'm Adebisi, christian wife, mother to Joy and Joseph and founder of the super-comfy baby carrier, Joy&Joe baby wrap carrier. With this blog, I hope to share my experiences as a mother to two special needs children and to hopefully inspire every reader. I believe I have a great sense of humor, so you definitely get a chuckle here! I wanted to start blogging from the day my daughter was born in 2007 to act as a positive reminder of what we've been through (and still going through!) as a family.So I'm so excited that I've finally summoned courage to do so! Free free to drop a comment on any of my blog posts. Thank you so much