Cancer Survivors Network - Comments for "fallopian tube cancer"http://csn.cancer.org/node/174019
Comments for "fallopian tube cancer"en-csnFallopian Tube Cancerhttp://csn.cancer.org/node/174019#comment-1483056
<p>Hello all you survivors of ftc.&nbsp;&nbsp;&nbsp;&nbsp; I was diagnosed with ftc in August of 1997.&nbsp; I had one 6 month treatment of Cisplatin and never had to return for treatment again.&nbsp;&nbsp; I was treated at the Hospital of the University of Pennsylvania and had great doctors there.&nbsp; I went in to have a large fibrous tumor removed from my uterus. One lymph node was inflamed and the doctor went looking for the source of the cancer. It was in the fallopian tubes.&nbsp; I had a complete hysterectomy.&nbsp; My chemo started the week after surgery and I went every three weeks until my last dose in January.&nbsp; I do know now that when I left the hospital I still had some cancer in me, but they did not tell me that.&nbsp; I was an elementary school teacher and I just wanted to resume my normal life.&nbsp; I prayed diligently and convinced my body every morning that it had brought me through life for 44 years and that my brain knew how to go back to making healthy cells.&nbsp; Yes, I talked to my body!</p>
<p>I kept only positive thoughts and visited my class often to keep me in touch with the world.&nbsp; I got involved in other things so that cancer would not be on my mind every minute of every day.&nbsp; I had great support from my husband and colleagues.&nbsp; I remember planting daffodil bulbs in October of '97, hoping I would be alive to see them in April. I know that every morning when you wake up your first thoughts are of cancer -- but they cannot hang around and ruin your life.&nbsp; Do whatever you like to do.&nbsp; Do not let the cancer diagnosis stop you.&nbsp; I truly believe that you treat cancer in your mind as well as through chemo.</p>
<p>It has now been SEVENTEEN AND A HALF years since my cancer diagnosis.&nbsp; I never had to go back for chemo again.&nbsp; I know that mine is a miraculous story.&nbsp; I prayed for a miracle and I got one.&nbsp; Why couldn't you also get one?&nbsp;&nbsp; Be positive, keep on 'living', do what you like to do.&nbsp; LOOK TO THE FUTURE!&nbsp; You surely have one and remember " cancer is just a lump in the potato of life"!</p>
Sat, 27 Dec 2014 20:11:16 +0000ODoncomment 1483056 at http://csn.cancer.orgFallopian tube cancer stage 3chttp://csn.cancer.org/node/174019#comment-1475212
<p>Hi Dolores,</p>
<p>I am a FTC survivor. I was diagnosed stage 3c in March 2014 during an emergency csection. I was 28 yrs old and pregnant with my second child. I had a TAH/BSO and 18 wks of chemo. My CA-125 went from over 3000 to less than 20. In August of this yr, I was found to be NED. I have my first 2 month check up tomorrow. I'm so nervous and anxious about recurrence. It seems inevitable. It's such a scary life to lead. Just know you are not alone. I actually worked closely with a woman from the national cancer foundation to design a ribbon for FTC. I chose the inside of the ribbon to be zebra for rare and the outside lined in dark purple. I will post a pic. It really bothered me that we didn't have our own ribbon! We do now!</p>
Wed, 29 Oct 2014 12:31:14 +0000Freckles0808comment 1475212 at http://csn.cancer.orgJust wanted to let you knowhttp://csn.cancer.org/node/174019#comment-1467378
<p>Just wanted to let you know that I was diagnosed in March of 2002, stage 3c-- and I am still here.</p>
<p>All best to you.</p>
<p>betsy</p>
Thu, 04 Sep 2014 22:36:48 +0000betsy aaroncomment 1467378 at http://csn.cancer.orgHi Delores,
I f it's anyhttp://csn.cancer.org/node/174019#comment-1467376
<p>Hi Delores,</p>
<p>&nbsp;</p>
<p>I f it's any comfort, I was diagnosed in March of 02, stage 3C and so far , so good. My CA-125s have been consistently low.&nbsp;</p>
<p>I wish you all the best.</p>
<p>&nbsp;</p>
<p>Cheers,</p>
<p>betsy</p>
<p>&nbsp;</p>
Thu, 04 Sep 2014 22:33:46 +0000betsy aaroncomment 1467376 at http://csn.cancer.orgCt scanhttp://csn.cancer.org/node/174019#comment-1272407
<p>My dr. Has not ordered that yet...... Just a pelvi MRI and vaginal ultrasounds and because they aren't showing any masses, I think he thinks that I am worried for no reason. Did your ct scan show a mass? What were your symptoms? Thank you for responding to me.</p>
Mon, 27 Aug 2012 19:36:03 +0000Lisa in N.J.comment 1272407 at http://csn.cancer.orgCt scanhttp://csn.cancer.org/node/174019#comment-1272408
<p>My dr. Has not ordered that yet...... Just a pelvi MRI and vaginal ultrasounds and because they aren't showing any masses, I think he thinks that I am worried for no reason. Did your ct scan show a mass? What were your symptoms? Thank you for responding to me.</p>
Mon, 27 Aug 2012 19:36:03 +0000Lisa in N.J.comment 1272408 at http://csn.cancer.orgCT Scan?http://csn.cancer.org/node/174019#comment-1270083
<p>Have you had a CT scan yet?</p>
<p>Don't ignore what your body is saying.</p>
<p>I'm a Fallopian Tube Cancer survivor (age 42) and I finished chemo a little over a year now.</p>
Tue, 21 Aug 2012 22:28:33 +0000louvarncomment 1270083 at http://csn.cancer.orgFallopian tube cancer?http://csn.cancer.org/node/174019#comment-1269227
<p>Hello loving life and anyone else who can offer some insight,</p>
<p>Let me first say that I am sorry to read all of your stories..... You are fighters and God bless you all.</p>
<p>I have not been diagnosed yet but I fear I have this and I feel my dr. Is not aggressive enough. I am 46 years old...... Have two grown children and just adopted a little girl who is almost 3. I went to my regular gyno in Jan. With complaints of cramping at odd times during the month. A few months later I had a watery discharge which started rightnafter my period and lasted until mid cycle and then seemed to stop. She wanted to do an ablation but I felt like I should see an gyno/ oncologist so I started seeing him. My ca125 is in the 50's. Five years ago, it was a 5. I have had severL vaginal ultrasounds which showed nothing suspicious..... I do have a fibroid on my uterus and a cyst on my ovary which he is monitoring, but he is not worried about that either. I have had a pelvic MRI.....again, showed nothing, in my dr's opinion, nothing suspicious. However, he cannot explain my watery discharge and feels my tests don't warrant any kind of surgery. I also feel bloated, feel full quickly, etc. I am so worried. I tried to get an appointment with another specialist at Sloan Kettering, but they won't see me unless I have a "diagnosis.". And as you know, unless I have some kind of surgery, they can't diagnosis me. I feel I am in a catch 22 situation. Any comments on my situation would be appreciated.........</p>
Sun, 19 Aug 2012 15:33:25 +0000Lisa in N.J.comment 1269227 at http://csn.cancer.orgstrange path to a diagnosishttp://csn.cancer.org/node/174019#comment-1264947
<p>I went for a radical hysterectomy on Aug. 2. after having had a biopsy of my endometrium done which showed that I had serous papillary carcinoma. Today I got my pathology report and they found that the cancer was found in my left fallopian tube and not in the endometrium. The doctor was not available so the nurse just read some parts of the report until the doctor can talk to me on Monday. She said that the nodes were all negative, but that the tummy wash revealed some cells. She could not tell me what exactly that meant. I had my omentum removed and that was all clear of cancer. Can anyone tell me more about "tummy wash" and what it means that they found cancer cells there?<br />
You have had an amazing journey to good health and I wish you all the best. God bless you.</p>
Thu, 09 Aug 2012 15:35:03 +0000chachachacomment 1264947 at http://csn.cancer.orgOf course Dear! Depressionhttp://csn.cancer.org/node/174019#comment-1257503
<p>Of course Dear! Depression is a biggie,gaining weight for me was a biggie. I thought one of the few perks of having cancer was that I would probably get skinny...wrong! With the steroids and Benedryl I actually gained 30 pounds, was, and still am, hungry all the time. I don't have Fallopian cancer, I have UPSC,another rare one, same grade and aggression as you,1a,c, also same drug. Six rounds of Taxol and carboplatin and 5 rounds of internal radiation. I am also from Texas, and going outside is sheer insanity! I am 26 months out of chemo and all the hair came back except my lashes. I sure did find out those things are not there for beauty! With the wind and the dirt and the heat here in Texas I always have trash in my eyes! The taxol has given me deep muscle and joint pain that has not completely gone away yet and makes walking hard. I also get out of breath and sweat like crazy even though I had gone through the chance several years before all this. There are soooo many with symptoms like ours. If you havent already, check out the Overian board and the Uterine board where I am. We cyber-stalk each other all the time! Sometimes I find that a small box fan going all the time around you helps me more than anything, it also seems to help me breath. Let me know if I can help with anything. Best, debrajo</p>
Sat, 21 Jul 2012 06:42:31 +0000debrajocomment 1257503 at http://csn.cancer.org