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I've had CFS/ME for almost 4 years. The weakness is just horrible. And when I'm crashed I walk like a drunk. Also have had tremors in my right hand since I got sick.

My hubby and I had to take my mother-in-law to the neurologist for an MRI. After the MRI he took us in his office to discuss it. Well, most of his attention was on me. I'm thinking who's the patient here. He said I think you have some Parkinsonian symptoms going on here. I said no, I've been to many many doctors in the past 4 years and they say CFS/ME. He said please make an appt with me. So to satisfy my hubby I did. Ok we went. He said that myalgic encephalitis can cause Parkinson symptoms and he put me on Sinemet. In 24 hours my walking like a drunk left and so did the tremors. Everyone says they can see a huge difference in me. I still have the crashes bad (the terrible weakness and feeling like I'm going to die) but everything else is better. I told the dr that it's the weakness that really bothers me. So the end of this month he's going to start me on Provigil. Could I be that lucky to get my energy back too? Has anyone taken Provigil? If so has it helped? I don't want to get my hopes up. That's why I'm asking you all. Please let me know.
Thanks all,
Carol

It's always great to hear that there are doctors out there who observe something without being told there is a problem and offer a solution.

Please let us know how you do on the Provigil. I've done some reading on it and am considering asking my doctor about it since weakness and fatigue are almost worse than the pain for me. Of course, if I do this clinical study it won't be an option until he study is over.