Inspired by The Incomparable podcast’s series of “album draft” episodes, I thought it might be an interesting exercise to write about some of the albums that have been the most meaningful to me. So whether or not I decide to do several of these kinds of posts, here’s my first stab at it.

I was very close to never having heard of Marshall Crenshaw. It just so happened that my dad had used a cassette copy of Crenshaw’s eponymous first album to mix down one of his own original songs (Billy Joel’s Nylon Curtain was on the other side, which I’ll probably get into in another post). One day while in my teens, I went searching through my dad’s tape collection to find his song, and gave it a listen. The tape kept playing after dad’s song, and suddenly this simple and engrossing little guitar riff grabbed my attention, and I was pretty much hooked from then on.

That riff was, of course, the opening notes of Crenshaw’s “There She Goes Again,” which remains one of my absolute favorite songs. It pretends to evince optimism and liberation in the face of separation and loss, but it’s all obviously a mask for the sickening weight of regret and the sting of rejection.

His album, Marshall Crenshaw (1982), largely remains in this vein, with nostalgically styled pop-rock tunes that sound like they could have been recorded in a basement, and I mean that as a compliment. It’s certainly polished, but it also has an immediacy and organic feeling, as though Crenshaw and his band are friends of yours who are working on their record right in front of you.

Once I discovered Crenshaw, I immediately related to him. He’s a smaller guy with glasses who likes hats, and he writes extraordinarily satisfying, hook-infused melodies and arrangements, almost all of which serve as wrappers for some sort of pain, self-doubt, or regret. This element is rarely overt, instead it comes out in comic self-deprecation, little jabs at his blunders, and a kind of hapless, “well what can you do?” persona. I really get that.

Anyway, the album. “Someday, Someway” is the album’s hit, which you’ll still hear once in a while on the radio or pop up in TV shows. It’s a very good song, but it’s not even one of the better ones on the record. Apart from the opening track, highlights include “Rockin’ Around in NYC,” which is both bouncy and tense at the same, in which he sings, “I get the feeling that it really was worth coming after we tasted disaster”; and “Mary Anne” with its gorgeous counterpoint backing vocals and its resignation to someone’s else’s despair.

“The Usual Thing” and “Cynical Girl” are rather different in tone, but both are defiant love songs that embrace uniqueness and alienation. On “The Usual Thing,” he worries that giving himself over to someone else will cause him to “lose his energy,” which sounds to me like the lamentation of an introvert. “But,” he tells her, “if I didn’t think you were a little bit out-there too, I just wouldn’t bother with you.”

And on “Cynical Girl,” he longs for a partner who, like him, has “got no use for the real world.” He sings, “I hate TV. There’s gotta be somebody other than me who’s ready to write it off immediately.” Damn right.

I really like a lot of Crenshaw’s other albums, most particularly #447 and Miracle of Science, but Marshall Crenshaw is something truly special, a rare distillation of the delights of classic pop-rock and the pain of being “a little bit out-there.”

Time flies when you’re having fun, and it flies at Mach 5 when you’re not. When I hear my kids complain, “I’m bored,” I tell them how much I envy them. Oh, to be bored! To have no immediate demands on my time, energy, and attention! Boredom may appear to be an unpleasant state, but it’s also a harbinger and a breeding ground of things worth doing. It’s the preamble for activities of choice, not obligation.

By mere coincidence I read in succession two pieces on how terrible we humans are at perceiving time and its passage, and how we might alter those perceptions in a more meaningful and satisfying way. They are both entirely convincing, and yet they each offer conflicting ideal states of mind. Or they might not.

First, Alan Jacobs in The Guardian. (I have never met this man, but I swear I count him among the most valuable teachers of my life.) Jacobs refers to our culture, as driven by our various media, as “presentist.” He writes, “The social media ecosystem is designed to generate constant, instantaneous responses to the provocations of Now.” There’s no way to think deeply or consider alternate or broader perspectives because the fire hose of stimuli never ceases.

The only solution is to cultivate “temporal bandwidth,” which Jacobs defines as “an awareness of our experience as extending into the past and the future.” Less “now” and more “back then, now, and later.” And the way we do that is to read books. Old books, preferably. “To read old books is to get an education in possibility for next to nothing.”

That education sets the stage for one’s mind to not only absorb the wisdom and the mistakes of the past, but to contemplate how they “reverberate into the future”:

You see that some decisions that seemed trivial when they were made proved immensely important, while others which seemed world-transforming quickly sank into insignificance. The “tenuous” self, sensitive only to the needs of This Instant, always believes — often incorrectly — that the present is infinitely consequential.

But cultivating temporal bandwidth is happening less and less, it seems. And as Jacobs says in a separate post, “Those who once might have been readers are all shouting at one another on Twitter.”

But while Jacobs recommends steering us away from believing the present to be of prime significance, David Cain at Raptitude urges us to grasp the present more tightly, and let concerns about the past and future fade to periphery.

And it is all to address the same basic problem: we feel washed away by the force and flow of time. Comparing an adult’s perceptions of time to a child’s, Cain writes:

As we become adults, we tend to take on more time commitments. We need to work, maintain a household, and fulfill obligations to others. […] Because these commitments are so important to manage, adult life is characterized by thoughts and worries about time. For us, time always feels limited and scarce, whereas for children, who are busy experiencing life, it’s mostly an abstract thing grownups are always fretting about. There’s nothing we grownups think about more than time — how things are going to go, could go, or did go.

Cain doesn’t point to social media or cultural illiteracy as culprits, but rather our disproportionate fixation on the past and the future. It may be that Cain is largely discussing a different scale of time than is Jacobs. Cain seems to be referring to our fixation on what has happened in the relatively recent past (10 minutes ago or 10 years ago, for example) and what the immediate future bodes (say, the next couple of hours or the next couple of months). Jacobs, by emphasizing the reading of “old books” (and by quoting lines from Horace) is certainly thinking of a much deeper past and a more distant future, spans that transcend our own lifetimes.

But as I said, Cain recommends regarding the past and future less, and home in on the present. “The more life is weighted towards attending to present moment experience, the more abundant time seems,” he says. And the way to attend to that present moment, as clichéd as it might sound these days, is through mindfulness, which can mean meditation or any activities “that you can’t do absent-mindedly: arts and crafts, sports, gardening, dancing.” Here’s why:

It’s only when we’re fretting about the future or reminiscing over the past that life seems too short, too fast, too out of control. When your attention is invested in present-moment experience, there is always exactly enough time. Every experience fits perfectly into its moment.

Note that Cain never mentions reading as one of those activities that one can’t do absent-mindedly. I don’t know about you, but if I read absent-mindedly I’m probably not actually reading at all, or at least not in such a way that I’ll retain anything. So whether or not he intended it or agrees with it, I’m throwing “reading books” into that list.

This is the bridge that connects these seemingly-conflicting viewpoints, making them complementary. Much of this rests on the difference in time scale I referred to, which, if taken into account, begins to form a complete picture. Few would argue with the idea that fretting about the immediate past and future is detrimental to one’s experience of time, or that contemplation and consideration of history and the long-term repercussions of our actions is a waste of time.

They key word here might indeed be “fretting.” In this sense, the definition of “fretting” isn’t limited to “worrying,” but describes a broader practice of wasting energy and attention on things within a narrow temporal scope without taking any meaningful action to address whatever concerns might be contained within. We fret about choices we’ve made and what such-and-such a person is thinking about us or how we’ll ever manage to get through the day, week, or year with our sanity intact. We rarely fret about how the Khwarazmian Empire was woefully unprepared for the Mongol army under Genghis Khan in 1219, or how the human inhabitants of TRAPPIST-1d will successfully harvest the planet’s resources to support a growing populace.

And of course, nothing engenders fretting like social media. Already primed for fretting by the demands of work, family, and self-doubt, now we can fret in real time (and repeatedly) over anything relatives, acquaintances, total strangers, politicians, celebrities, and algorithms flash before our awareness. It is possible to exist in a state of permanent fret.

Let me tell you, time really freaking zooms when you’re fretting.

So let’s combine the recommendations of Jacobs and Cain to address our temporal-perception crisis. Let’s get off of Facebook and Twitter, let’s turn off the television, and let’s get to that stack of books (or list of ebooks if you prefer) and read. Let’s allow our brains to expand our awareness, considerations, and moral circle beyond this moment, this year, this era. Let’s not burden ourselves with the exhausting worries about what we’re reading or how long it will take to read it or what else we should be reading but aren’t. Let’s make time to chat with our kids and our parents, and write, tinker, draw, arrange, organize, build, repair, or tend as best suits us. Let’s stop and breathe and think of nothing for a few minutes as we focus on the present instant in time and space, even to the atomic level. And then let’s think big, daring, universe-spanning thoughts beyond all measure.

Let’s be bored, and let that boredom nudge, inspire, or shock us into activity, be it infinitesimal or polycosmic.

It will take practice. It will not be easy. Let’s accept that this, too, is a journey of time and effort and moments.

SPOCK: Remarkably analytical and dispassionate, for a human. I understand why my father chose to mind-meld with him. There’s almost a Vulcan quality to the man.

DATA: Interesting. I have not considered that. And Captain Picard has been a role model in my quest to be more human.

SPOCK: More human?

DATA: Yes, Ambassador.

SPOCK: Fascinating. You have an efficient intellect, superior physical skills and no emotional impediments. There are Vulcans who aspire all their lives to achieve what you’ve been given by design.

DATA: You are half human.

SPOCK: Yes.

DATA: Yet you have chosen a Vulcan way of life.

SPOCK: I have.

DATA: In effect, you have abandoned what I have sought all my life.

– Star Trek: The Next Generation, “Unification Part 2” (1991)

For the socially alienated, such as autistics like myself, the characters of Spock and Data from Star Trek are immediately relatable. Not because of their lack of emotion, but because of their estrangement from their peers. Extraordinarily intelligent, yet unable to understand the motivations or the social and emotional needs of the humans around them. Though full members of their respective crews and fully equal members (eventually, for Data) of their adopted societies, they are nonetheless alone.

But apart from being non-human, the sources of Spock’s and Data’s alienation are quite different. Spock, genetically half-human and half-Vulcan, aspires to overcome the psychological weaknesses he believes his human side burdens him with. Data, the creation of humans, has put himself on a quest to exhibit the qualities of humanity as faithfully as possible. While he may be confused by human weaknesses, he nonetheless wishes to replicate them.

Framed this way, Data may be the more relatable to the socially alienated. Those with Asperger’s like me, for example, are obviously the product of humans, and live and work among other humans, but struggle to make meaningful social and emotional connections with the neurotypical majority. This is painful, and there seems to be no remedy. No matter how hard they try to ape the behavior of neurotypicals, it is just that, an aping. And yet they, we, pine for that connection. For belonging.

Spock represents something that I would guess is less common, the socially alienated person who wishes to remain alienated, because to assimilate would be to corrupt oneself, to debase oneself. Surely there are those intellectuals and savants who identify with Spock in this, and surely they too experience the discomfort of alienation. But I suspect that is the Datas among us that are truly suffering from their estrangement.

To the normals and the neurotypicals, I have to assume that these two dispositions, the Spock and the Data, are more or less indistinguishable. Both exhibit as emotionally distant. Both are prone to say things that, to the normals, are considered inappropriate, offensive, or bizarre, despite innocent or benign intentions. Both invite varying degrees of pity or condescension from normals for what they perceive as naivete or “disability.”

For a Data, there is a constant pull toward the group, a tug toward the tribe. The Data will practice the mannerisms and idioms of the normals, and often fail laughably. For a Spock, the social distance is actively maintained. Rather than gravitate toward inclusion, they prefer to observe from a safe and less distracting distance. There is no attempt to do as the Romans do. To the Spock, the Romans are silly.

From my own point of view, to adopt the Spock approach would be a luxury. While I do not believe that a Spock-type never suffers in her alienation, she certainly suffers less. A Spock has already decided that there is little to be gained from full social inclusion, and little to envy from the normals’ mindset. What a relief that would be.

The Data, however, is all too aware of the myriad ways she does not match up to her normal peers. She suffers from the humiliation of failed attempts to assimilate, and she suffers from her solitude. And unlike the character of Data the android, Data-types definitely experience emotions, often severely. It is a sisyphean way to live, except that everyone is watching and audibly commenting on how weirdly one is pushing the rock up the hill.

In a previous piece, I chose another Star Trek character as an Aspie-analogue, and reflecting on it now, it seems to fill a kind of middle-ground between the Spock and the Data. I’m talking about Odo. I wrote:

Though he takes a humanoid form as best he can, no one thinks Odo, the changeling, really looks like them. He doesn’t understand humanoid behavior, but he does try to map it out in order to follow others’ motivations and how they lead to actions. He is impatient with the things that humanoids seem to find fulfilling and important, which to him seem pointless and wasteful. He comes off as mean when he doesn’t intend to. He craves companionship, but knows he can’t have it. And when it all comes down to it, when he’s tired of pretending to be one of the “solids,” he must — absolutely must — return to his bucket. He must resume his true liquid form, stop pretending, find total solitude, and rest.

If Spock and Data show us two poles of how the socially alienated cope with their weirdness, Odo shows us the consequences of all that work. What does the outcast do after all the failed attempts to commune, or after a day of navigating the incomprehensible absurdities of the normals’ behavior? What toll does it take?

And now—let’s go ahead and rip this excruciating band-aid off—my marriage of ten years has ended.

(This is not going to be a post about what lead to this, nor will it be about the ongoing cascade of pain, depression, and fear I’ve experienced, as I’m just not ready for that, so adjust your expectations accordingly.)

The cliche about turning 40 is that I am now “over the hill,” and if so, the timing for that could not be worse. Over the course of two years I have made the most profound self-discoveries of my life, having the nature of my brain, personality, quirks, aversions, talents, and handicaps revealed to me as products of Asperger’s syndrome. In the midst of this, I was given opportunities to put my talents into practice in new ways; directing plays, doing a residency at a writers’ refuge, hosting a podcast with an actual audience, writing for an excellent technology website, and soon, the publication of my work in a journal near and dear to my heart. Of course I’ve also been learning to deal with my hearing loss.

The end of my marriage, obviously, is quite something else. It is utterly disorienting. It gives me the feeling of being uncontrollably adrift, like an astronaut on a space walk whose tether has been severed. This is particularly so considering that Maine is not my home turf. We came to live here to be near my wife’s family. While they have gone out of their way to make certain that I feel that I am still and will always be a part of that family, it remains that I have no circle of friends here of my own. Almost all of my acquaintances are second-degree connections from the marriage. Because of the love of these wonderful in-laws (former in-laws?), I am not actually alone. But because I have no social or familial foundation of my own, in some important ways, I am indeed alone.

Follow me
To the shipwreck shores
Of a dark and strange country
I was born
A stranger thinking out loud
In a foreign tongue

I was out of place
I was looking all around
Just a trying to find a friendly face
But they’re all gone

This reminds me of how I feel in any new environment, really, but seems particularly apt for suddenly finding myself spouse-less in Maine.

What a thought. At the dawn of my fifth decade, I am forced to reset. I begin 40 without nearby close friends, without nearby relations, and without a significant other. (In fact, I haven’t been “single” for more than 16 years.) I begin 40 with a new debilitation, my hearing loss, and with a still-new and bewildering understanding of why I am as weird as I am, my autism.

In one positive sense, it’s a refreshing chance to “start over,” and begin a fresh, new life with a deeper understanding of who I am, what I’m capable of, and what I’m not. But it’s not really starting over, because the time has still passed. I don’t get to start from 18 again. I still have to go from 40.

And so it must be. When I was diagnosed as autistic, part of me mourned for the years I had lost in which I had no idea why I was the way I was, why I couldn’t meet others’ expectations of normalcy, why I couldn’t bring myself to share others’ priorities or interests, and why I felt like a member of some different species.

The second verse of “Busted Heart” reminds me of what it’s like to be weird like me, to have Asperger’s:

And wisdom is a whisper
And I’m trying to understand
What I say, what I think,
Where I sleep, when I breathe
What I do with my hands

So perhaps I am now in a dark and strange country, but maybe it means I have the chance to re-enter that country with this greater understanding, but instead of laboring to apologize and make up for my oddness, I can embrace it, and advocate for my right to be the way I am. More than that, maybe I can “be like what I’m like,” and consider my differences to be positive, distinguishing qualities.

Maybe.

No, really. Maybe. The song is called “Busted Heart,” which is a sad thought. But read the lyrics of the chorus:

And a busted heart
Is a welcome friend
And when that heart leaves
What will you do then?

Really, my heart was busted long before my marriage, long before I grew up. In a way, I was born with a busted heart. But you know what? A busted heart is a welcome friend. Not to me, but to others. I’m a little broken, and I think out loud in a foreign tongue, but because of that, not in spite of it, I might be worth having around…to someone.

I’m 40. I’m over the hill. Over that hill is a dark and strange country. But maybe the people there will be cool.

It’s the late autumn of 2017, and I’m in Point Reyes Station, California for a two-week writers’ retreat. I was walking down a remote road, taking one of my regular strolls into town for supplies, a bit of exercise, and to take in the landscape, which was stunningly beautiful. The weather was nearly perfect, and being so removed from everything, cars and other pedestrians on the road were quite rare. I was alone and enjoying the movement and the environment.

The wind picked up a little and it whooshed deeply in my ears. You know the sound, the low thup-thup as the air pummels your earlobes. Maybe I hear it more than others because my ears are little on the bigger side, so they scoop up a bit more air.

Only something was off. The whooshing sound was there, but it was only coming in on the right side of my head. That was weird. I must have just happened to be facing in such a direction that the wind was hitting my head at that particular angle. So I checked.

I pivoted my head in different directions, while walking, while standing still, and nothing changed. I walked to different parts of the road with different landscape features; fewer trees, fewer houses, atop an incline, then toward the bottom. Still the same. I wasn’t hearing the wind in my right ear at all.

I snapped my fingers in both ears, and noticed no meaningful difference. I rubbed my finger along the surface of my earlobes and ear canals. In the left ear, I could hear the deep rubbing and rumbling sounds of the friction. In my right ear, I heard a faint and wispier sound, like something soft brushing on paper, at a distance.

I got out my headphones and attached them to my phone. I played some songs, and only listened through one earbud at a time. In the left ear, the full, rich sound came through that I had come to expect and enjoy from this particular pair of headphones. In my right, the bass and mids were, alarmingly, almost nonexistent, save for the high-frequency sounds of strings being scratched or plucked. All I heard were higher-end sounds, such as vocals, snares, and cymbals, only much tinnier, thinner, weaker.

Finally, I tried listening to a voicemail to see if I could hear a phone call. Again, the expected normal sound of the voice came through the phone’s little speaker into my left ear. Putting the phone up to my right ear, the voice sounded like it was coming from a tin can stuffed with cotton. I could hear the voice, but barely.

This was unmistakable. I wasn’t being paranoid. I had lost hearing in my right ear.

*

It’s the spring of 1994 in Absecon, New Jersey. I’m a 16-year-old junior in high school, in an exurban basement. It’s the house of one of my friends from marching band, Chris, and by way of some now-forgotten confluence of agreements and compromises, I have formed a crappy little band with him and two other friends; Chris on drums (talented thrash metal devotee), my best friend Rob on bass (had never played, and was borrowing my dad’s sort-of vintage bass guitar), me on lead guitar (I had no business being a lead guitarist but I could play chords and learn songs by ear relatively easily), and one guy I met through Chris, Corey, our lead vocalist, a kind of Axl Rose/grunge type (and who was tone deaf).

I told you it was a crappy band.

Nonetheless, it was my band, and my sole outlet for playing with a full set of musicians on a few songs I really liked (and some I really didn’t, but like I said, agreements and compromises). In the year or so we played together, I don’t know that we ever got to the point of being “good,” but we did manage to scrape together a handful of songs that we could enjoyably hack our way through. It was fun, at least some of the time.

On this occasion, we’ve been a band for a few months, and Corey and Chris have brought with them a friend of theirs, another guitarist who was straight from the Metallica/Megadeth school of metal. He had the requisite long hair and patchy teenage facial hair, including that mustache so many of those guys wore back then that usually signaled to me, for some reason, that I should be wary of them. I don’t remember his name, so let’s just call him “Patchy-stache.”

Apart from having some obviously advanced skills in metal lead guitar, Patchy-stache also brought with him something else we didn’t have: a giant-ass stack of huge amplifiers. For our usual rehearsals, I hauled back and forth my dad’s ancient Vox tube amp and a very small beginner’s amp that I’d gotten as a birthday present. Corey had a decent amp and PA for his vocals and occasional guitar playing. With what we had, we could barely hear ourselves over the astounding pound of Chris’s drums. That guy did not mess around behind that set. Usually I wore earplugs to protect my hearing, though not always. I was afraid it made me seem like a wuss.

So here we were in this small space, enclosed in concrete, with our usual collection of aspirationally loud shit. And now here’s Patchy-stache with his menacing obelisk. When he played through it, the obelisk emitted these teeth-rattling, piercing riffs, filled with stabbing licks and needle-like harmonics. It was painful. I of course didn’t know at the time that I was autistic, and already wired to be overwhelmed by stimuli like noise, and I didn’t have my earplugs in.

But I dared not show my discomfort. Checking for the other guys’ responses to this sonic assault, they seemed totally unfazed. I tried to indicate that this decibel level might be a bit too much with some humorous gesticulations of my ears exploding. It got me some smirks, but nothing else. It was really quite awful, but if there was one thing I found more excruciating than a storm of stimuli, it was the threat of social rejection, of being called out as lesser than the others. So I endured.

That night, I of course had ringing in my ears, like anyone would after a loud concert or something. But in addition to the ringing, there was also a low humming sound in my right ear, which happened to be the ear that was more directly facing Patchy-stache’s amps. It had clearly taken the brunt of the abuse.

The next day, the ringing had left both of my ears, but the hum remained. And it stayed. Forever.

*

I got used to it. At first it drove me nuts, and I had trouble sleeping. But I think it was only a few months before I’d learned to manage it. When there was sufficient ambient sound, the humming almost “turned off.” It weirdly just seemed to stop when there was enough sound around, not just fade to the background to become less noticeable. Whether that’s true or not is kind of academic, since tinnitus (the name of the condition) is mostly about the brain responding to a trauma. It’s a kind of illusion, but also not.

I’d learned to sleep by having music on at night, and that became a years-long habit regardless of my tinnitus. Throughout high school and college, most of my music listening happened in bed, where I’d fantasize scenarios in which I and my friends, all of us now musical virtuosos, were the ones performing these songs. I loved those fantasies. Now they just hurt, but explaining that is for another time.

Going into full adulthood (assuming I have actually done that), the hum became a total non-issue. It was always there, and I was aware of it, but it no longer troubled me at all. It was just part of the sound of being alive.

The right ear remained sensitive, however, so I’d shrink from blasts of sound directed at it. I’d had a few scares after, say, acting partners or overexcited children would inadvertently scream in my ear, causing me acute physical pain, but it always subsided and things went back to normal. And if the stabbing that Patchy-stache’s amps perpetrated on my ear had reduced my hearing at all, I couldn’t tell. For over two decades, I enjoyed the full scope of stereo sound, and as far as I could perceive, heard equally well out of both ears.

I didn’t appreciate it like I should have.

*

It’s the early autumn of 2017, a few weeks before I’d go to the writers’ retreat in California. My sinuses feel a little plugged up, which is not at all unusual for me. The usual pressure, the usual feeling of crud in the back of the throat, but it’s all very mild. I don’t even really notice it.

What I do notice one evening is my tinnitus. As I said, I have a baseline awareness of it as a matter of course, but I don’t often “notice” it. Well, now I did, a lot. The subtle hum was now blaring in my ear, several orders of magnitude louder than usual. Though this was unpleasant, it wasn’t totally surprising. Once every long while, some nasal or sinus related thing will make it sound a little more present in my head, and it always passes, returning to normal.

But jeez, this was really quite loud.

Days went by, and it wasn’t getting any better. If anything, it was getting worse. The sound was even louder, producing a sensation that was kind of like something pressing against my face. It felt like I had my head flat up against a some sort of enormous air compressor, subtly pushing into me. Or like the hum of all the electricity in the world was behind a wall to which my ear had been affixed with superglue.

My doctor said it was probably just a sinus infection affecting the existing tinnitus, and that would hopefully clear up with some antibiotics and decongestant. This felt particularly urgent, given that I was about to head off to California for my fortnight of writing. The last thing I wanted while trying to enjoy the peace of staring out over the San Andreas fault was to have the sublime state constantly interrupted by the jet engine in my head.

Unfortunately, by the time of my trip, the problem still persisted. The sinus treatment had no effect. I had some hope that maybe the shifting air pressure of my upcoming flights might sort of pop the problem out. But, of course, no. So I just had to cope.

A few days in, I noticed that I couldn’t hear the wind in my ear. A couple of days after that, the sound amplified yet again, out of nowhere, to the point that it physically hurt, causing me to experience a little vertigo. I saw a doctor in town and was prescribed some ear drops as a kind of shot in the dark, which also did not help.

Shortly after my return home, I saw a couple of specialists and had my brain scanned. The audiologist was the only one with any news, and it was not really news. I had indeed lost much of my ability to hear the low and middle frequencies of the sound spectrum in my right ear, and the tinnitus was my brain’s misguided attempt to investigate and compensate for the loss. Because they were happening at the level of the brain and inner ear, both were almost certainly permanent.

Both are permanent.

*

I have lost very little, really. I’m not by any means disabled. I’m not even a good candidate for a hearing aid. Someone whose pinky was cut off in an accident will struggle far more with their loss than I will have to with mine. With all the things that a human could suffer, with all the debilitating diseases, injuries, and accidents of fate that could befall a body, this doesn’t even approach the status of “big deal.”

But it’s still a loss, isn’t it? A little one. And sometimes little things matter a whole lot.

There is a space in the constellation of sound that one of my ears won’t ever experience again, not meaningfully. It’s just gone.

When I’m working on a recording for one of my songs, I’ll no longer be able to rely on my own senses to find the right blends and mixes of sounds that will bring the music to life. One side of my head will be missing way too much of it. It would be like directing a play with the lights dimmed on half the stage.

(I guess I could produce everything in mono. I mean, the Beatles did for a while.)

The other ear is fine. The full sonic palette remains available to it. But both ears, of course, will now only get worse as I age, because that’s what happens to human bodies. More colors will dry up or be scrubbed off my palette.

And then there’s the hum. Or rather, the droning. That’s a new reality that must be accepted as well. I became so accustomed to its first manifestation over the past 23 years, that I had the luxury of giving it almost no thought at all.

Now it’s a different story. This new, louder sound is always there. Even when I’m distracted by other sounds, ambient or otherwise, I remain aware of the droning. And because it pulses erratically in tone and intensity, it’s as though it’s not satisfied to merely exist. It’s like it wants my attention. It wants me to feel menaced by it.

It might yet become tolerable or even of negligible concern as the years go by. I kind of doubt it.

But I’m fine. As far as da-to-day obstacles, the hearing loss just means I’ll have to say “what?” more often, which will at times get a little frustrating for me and the people around me, and that’s really nothing. The droning, well, that will bother me exclusively.

Regardless of the relative severity (or lack thereof) of the loss, I’m grieving it. I’m sad and angry about the fact that I’ll never experience music and sound to the full, rich extent that I once did. That I so loved. That filled me up and saved me. Most of it is still there, but it will never be the same again. And I’m going to mourn that.

It is my third full day at the writers’ refuge and I am researching my article’s topic, the muscles in my neck and shoulders simultaneously taut and compacted such that I find my range of motion constrained.

I am in a veritable paradise, with astounding natural beauty, a sublime and comfortable writing environment, surrounded by books and supplies and various corners and nooks into which I can settle and work my craft, smart and friendly people around who are both few in number and fully understanding of my need for solitude, but also interesting and enlightening when I do get into conversation with them, and two weeks to pursue this project in any way I please. Oh, and I am right now looking at a different tectonic plate than the one on which I stand. Seriously, it’s right there. Also, deer aren’t afraid of us, and they hang out and eat apples. Oh oh oh and there’s a hawk that flies around my part of the house, sometimes so close I can look into its eye.

And I’m lost. Whereas I had begun this retreat with a lot of enthusiasm for this project and eagerness to get it going, I’m now overwhelmed by the breadth of the topic, unsure of the degree of depth that is most appropriate, ignorant of the best practices for this kind of work, anxious about the unwise use of my time, and generally feeling beneath the task. I even think I broke the electric kettle in the kitchen.

I am being treated to more privilege than billions of people will ever experience, and here I am, angsty. I hope I at least get credit for recognizing the absurdity of my own hangups.

I know there is no right way to go about this. That’s really the point of this retreat, to give writers the space and time to take things at a pace and within a structure that suits the writers themselves. I’m so accustomed to stop-and-start times, specific formats and styles for particular written products, and an established approval process, that this freedom, this liberation, is bewildering.

But now that I think about it, I suspect that what’s really going on is very similar to the distinction I make between performing as an actor on stage in a play and giving a presentation on a real-world topic for my job. There is too much of me riding on it.

Let’s begin with the theatre/work-presentation distinction. Upon learning of my autism/Asperger’s diagnosis, many people who know me from my theatre life are in disbelief. How can I feel anti-social, afraid of human interaction, uncomfortable in crowds, and oversensitive to stimulation and also thrive on stage? It’s a perfectly reasonable question (though I bristle at the skepticism of my diagnosis that it implies), and one that took some time to for me to understand myself.

When I’m performing a role in a play, there is no question as to what I will talk about. My words are predetermined, and not just for what I will say, but when I will say it. The play will also have been blocked, meaning that where I am in space will also have been set and rehearsed well in advance. Through the rehearsal process, it will be determined how I will say all these words, how I will conduct myself physically, and even how I will imagine my character to have reached those various decisions. There is always room for change, iteration, adjustment, and depending on the production, sometimes even improvisation, but the structure is always there, and it is firm. Most importantly, I am not me. I am someone else. Not literally, of course, but there are sufficient layers between me and the audience (and even between me and my fellow actors on stage) that the excruciating discomforts associated with my autism are, if not wholly eliminated, sufficiently dampened. The role is a mask.

But take me out of the world of the performing arts, and into the world of speaking on behalf of an organization or a cause, and those layers are stripped away. If I am, for example, expected to give a talk about communications work, I know I will be utterly exposed. Not only can I not play a character (try as I might), but the “real me” must also lay bare whatever degree of expertise I have, or claim to have. “I’m Paul, and this is what I know.” My words, my physical comportment, my inflection, my gestures, and even the very contents of my brain are open to public scrutiny. There is no mask. That is unbearable.

So let’s apply this basic idea to writing, and, in a way, the dynamics flip, with two different areas of my life producing opposite results. As I mentioned, my writing for work is routinized with established formats and processes. As with a public presentation, I am the one producing the words, but I am rarely writing them in my own voice. In a very real sense, when I write press releases, emails to supporters, and newsletters, I am writing “in the character” of the institution I work for. I’m playing the role of my organization. My job title and the institution’s logo, they are my masks. Those layers are sufficient, once I am settled into the given employers’ needs, processes, and, importantly, voice.

Here at the refuge, I am attempting to write a long form magazine article on a topic of great interest to me. But I am not writing or “reporting” it in the voice of my institution, nor in the voice of the publication in which it will appear, as one might do with a straight-news newspaper article. With this project, the speaker is me. The facts I present, the sources I’ve chosen to mine, the people whose perspectives I’ve sought, the conversations and quotations I’ve initiated, the things I’ve chosen to omit or gloss over, and the conclusions reached, they’re all me, in my own voice. Whatever is wrong or unsatisfying or weak about the final product is a reflection of me, with no mask to hide behind. That, I tell you, is dizzying.

Now, one might then wonder, hey Paul, you seem to have no trouble opening every one of your precious little wounds and examining them in detail on this little blog of yours. Too true! And I’m not certain why this kind of writing that I’m doing right now doesn’t make me feel just as vulnerable. But I suspect it’s because I’m rather sure of the topic at hand, that being myself. Even if I’m completely deluded about what is going on within my own tempestuous morass of a psyche, there’s no one else in existence who can claim a greater level of expertise or comparably intimate knowledge. There is relative safety in that. Whatever the reason, exposing my inner thoughts and struggles is far less perilous than claiming the authority to expound upon an external subject.

So perhaps a healthy approach, and even a more fruitful approach, is to lean into my own inclinations and preferences, and tackle the subject of this project through my own lens. In other words, rather than present facts and an argument impersonally, maybe I can chronicle my own experience of the subject as I absorb it, and recount for the reader my intellectual journey to better understand it. The cliché is that one ought to “write what you know,” but I really don’t know much. So maybe the best thing to do is to write what I am coming to know – of the project’s subject and of what it comes to mean to me personally.

Okay, maybe I can do that. Take it easy now, oh knotty neck muscles of mine. Let’s get a few deep breaths in. Let’s take in the vast scene of nature around us and indulge in its otherworldly peacefulness. Let’s let the brain soak up what it’s learning and let the new information bounce off the thoughts and values that are already there.