Support. Friendship. Hope.

Living with a rare disease can sometimes feel lonely. But you are not alone. PHA has a strong network of local support groups and an active online community. By reaching out to people who've been there, you will find fast PHriends who offer support, information and hope for the future. You can connect with the community however you prefer, whether that's on the web, on the phone, or in face-to-face support group meetings.

Walking for a cure at Baltimore Orioles Stadium

Connect

Online

Discussion BoardShare information and support on PHA's popular discussion board.

Email GroupsStay in touch with PHers via email in the general community group, special interest groups such as parents or young adults, groups to share tips on getting involved in advocacy and awareness, or networking groups for leaders and medical professionals.

PHA Launches Telephone Support Group for Patients

Have a hard time making it to a support group meeting? No problem. PHA is bringing the support group to YOU — straight to your home — via a telephone support group. Email Supportgroups@PHAssociation.org to participate.

Email Updates

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.