2 comments:

If I got an E-mail from you at all, I would be shocked. I do have a pretty good spam-blocker on my 'puter, though, so I'm not worried. It's usually the links inside the e-mail that you have to worry about. (My cousin sends me a lot of those that I never open... alas.)

i don't if you'll see this, i hope so. i'm just hoping that your lack of posts here doesn't indicate anything more than lack of enthusiasm - which i totally understand, i suffer the same thing. but i hope you are still among us!

HAWAII 2014 PARASAIL

My Brain On MS...3/14/08 Roll In The Tube

EMAIL:

LOCATION:

Seattle, WA, USA

AGE & OTHER TRIVIA:

50/female/Leo

DIAGNOSIS:

Relapsing & Remitting Multiple Sclerosis--Diagnosed 04/15/2003--(because having to pay taxes that day just wasn't enough!)

MEDICATIONS:

I have taken Copaxone, Avonex, IVIg, Tysabri, and 5 doses of Novantrone in 2007. I also participated in a Rituxan Study in 2005-2006. In the fall of 2007, while still on Novantrone, I began having "break through" symptoms, which became more and more frequent. In March 2008, I had an MRI that showed many enhancing lesions--Novantrone was no longer effective. Tysabri had been discontinued in November 2006, due to a questionable "anaphylactoid reaction". I received my first restart dose of Tysabri on April 8th, 2008, without experiencing ANY allergic response...I completed 9 doses of Tysabri in 2008, but continued to have some relapsing symptoms. I have, since December 2008, stopped all Disease Modifying medications and feel great...but don't tell my neurologist!