Friday, December 28, 2007

Kaidence looks great! She has been pretty awake today. She had another echo this morning and that looked great as well. GREAT! GREAT! GREAT! The doctor came and looked at Kaidence's vocal chords. The left side is moving but the right side is not. They are hoping that it will not be paralyzed forever. I guess that this means that Kaidence will have a big heart and be soft spoken. Probably the biggest problem is that the left lung still has her heart sitting on part of it. We don't want the lung to close off because it could cause pneumonia. We are praying that her lung will eventually get strong enough to handle it without the help of the cpap machine. If not then we may have to do a trach tube. We are also hoping that her vocal chords will work enough to protect her airway if she were to throw up. That way she would eventually be able to get rid of the feeding tube and eat on her own.

Kaidence is off some meds for heart rate & blood pressure. Sedation is weening off as well as her milrinone ( heart function medication). Numbers and labs look good and she has pink cheeks and warm feet. I can also cover her with a blanket without her getting it soaking wet. Over all everyone is very pleased with Kaidence's progress. She is growing like a weed and looks so CUTE!

Wonderful news! It is good to hear that Kaidence is doing so well. There are a lot of prayers for her and your family. We love little Kaidence she has brought so much into all of our lives.Have a great day!Love, The Buckway's

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About Me

I spent 127 Days at Primary Childrens Hospital in the PICU. I was born healthy but became ill after catching a virus that caused my Cardiomyopathy (an enlarged heart). My heart was not pumping and I was dying. We were granted special government permission upon emergency use to implant the "Berlin Heart" an LVAD (Left Ventricular Assist Device) for babies. This would give me more time to wait for a heart. I was the first patient in the state of Utah to receive this device. I received the experimental device in November 2007. It saved my life and I received a heart transplant December 2007, two days before Christmas. My new heart has given me a new chance at life and I am forever grateful to the fammily that gave me my "Angel Heart". Today I am 5 years old and awaiting a second heart transplant due to severe Coronary Artery Disease. My family and doctos were shocked to learn that I needed a new heart once again.
Our little Kaidence is a tough fighter. Our little Fairy of Faith.
This blog documents her Journey of FAITH!