Tag Archives: hyperacusis

Imagine being driven by the desire for connection and love, yet finding yourself nearly incapable of sustaining either. Some of us struggling single folks might relate to this feeling in some bittersweet way. Yet for those born with the rare genetic disorder, Williams Syndrome, this is not the material for self-deprecating, bitingly humorous blogs or heartbreak-with-a-happy-ending Hollywood movies. A recent piece by NPR explored how people with WS, who thrive on social connection, unfortunately often find it nearly impossible to develop and sustain close relationships.

Also due to spatial relationship deficiencies, those with WS have difficulties navigating from place to place. It is hard for them to organize and plan things. Plus, they find it extremely hard to concentrate and focus for sustained periods of time. As a result, as an adult, they find it tough to hold down a job, and perhaps, more importantly, fulfill perhaps their greatest desire: to form deep, interpersonal relationships.

Most with WS are very socially isolated. They often suffer from severe anxiety. An inability to pick up on the subtle social cues makes it a challenge to generate meaningful conversation and lasting relationships.

I can’t help but once again relate back to those of us single in the dating world. Often we can recognize our own worth, the strengths that we can bring to another person’s life, and are aware of our great capacity to give and receive love. Yet we’re constantly throwing ourselves pity parties when a suitor rejects us after one date, when we suffer the sting of an unrequited crush, or when a loving relationship dies right before our eyes, seemingly without warning. In spite of all the heartache and disappointments we live through, somehow, eventually, we manage to dust ourselves off, get back on our feet, and get back out there in our search for love.

But what of the folks with WS who, despite all their efforts, are literally handicapped from achieving their greatest desire for social acceptance and companionship? As new social training programs develop for people with WS, it is my hope that one day they too might grow closer to finding the love they so desperately seek.