Comments on: We Refuse to Be Mislabeled: Updating Rheumatoid Arthritis (RA) to Rheumatoid Disease (RD)http://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/
Information & encouragement to fight RASat, 10 Feb 2018 21:52:57 +0000hourly1https://wordpress.org/?v=4.4.2By: Kelly Younghttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-2493466
Tue, 15 Aug 2017 19:01:31 +0000http://rawarrior.com/?p=9576#comment-2493466Dear Cheryl,
There are steps to take printed out in my new book on rheumatoid disease, RA Unmasked. Over the next year, we’ll be talking about these here on the blog.
]]>By: cherylhttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-2490031
Sat, 12 Aug 2017 13:02:54 +0000http://rawarrior.com/?p=9576#comment-2490031HOw can i help get the name changed and raise awareness?
I have rhuematoid disease. It is severe and it isn’t arthritis.
]]>By: Kelly Younghttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-2130105
Fri, 22 Jul 2016 14:36:50 +0000http://rawarrior.com/?p=9576#comment-2130105Best of luck to you and your wife to be. How blessed she is that you are concerned enough to read and comment.
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Sat, 14 May 2016 13:46:51 +0000http://rawarrior.com/?p=9576#comment-2064573I’m about 4 months into a whirlwind romance. We’ve already grown insanely close. Anyhow, my wife to be, has a severe case of RA.

Admittedly, before we met, my best guess at what RA was, was a different form of OA. I just thought they varied slightly and thought both were considered fairly mild conditions.

I was surprised to learn RA was a full blown chronic disease that can cripple, amongst a whole other host of symptoms.

After I learned a bit, it became blatantly obvious that the name Rheumatoid Arthritis is a problem. When you reduce awareness you reduce funding, research, resources etc. And having arthritis in the name is misleading.

Like addiction, once they decided to call it a “disease”, help for addicts increased immensly. It started a small movement. The same thing needs to happen for Rheumatoid Disease!

That’s what I shall call it from this day forward. It’s such a complicated disease. It not only needs to change to help improve funding/research, but sufferers of this disease need their pain to be known to the world! It’s not fair to be swept under the rug, where auto immune disorders like MS, diabetes, and lupus are among the most researched diseases. Nobody questions the severity of them. I swear it has a LOT to do with arthritis in the name.

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Sat, 31 Oct 2015 02:44:11 +0000http://rawarrior.com/?p=9576#comment-1908008Carolyn, can you contact me soemtime about this? kelly @ rawarrior.com
]]>By: Carolynhttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-1724544
Sun, 19 Apr 2015 03:58:35 +0000http://rawarrior.com/?p=9576#comment-1724544Well, it’s 2015 and sad to say we still see no progress on this front. I keep searching for petitions to sign but they are all closed to new signatures. I wish there was a bigger push for this. Nothing irkes me more than the line “RA is a more severe form of arthritis,” um NO IT IS NOT! As you so clearly said, arthritis is one of many components of RD. I have early onset but debilitating RA/RD, but no arthritis! This disease has turned my entire life upside down in a matter of two years and I just want to scream. We NEED to get the damn disease name changed!!!
]]>By: Rheumatoid Arthritis and Adverse Childhood Eventshttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-1444535
Fri, 07 Nov 2014 19:21:48 +0000http://rawarrior.com/?p=9576#comment-1444535[…] because it is a systemic disease that affects more than the joints [see more on the RA Warrior blog here, here and Kelly's summary in pdf here] jQuery("#footnote_plugin_tooltip_1").tooltip({ tip: […]
]]>By: The Cost of Juicing | Geek Good Girlhttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-529987
Mon, 18 Mar 2013 03:57:18 +0000http://rawarrior.com/?p=9576#comment-529987[…] making a donation today. I do not have to eat well to lose weight learn more about Rheumatoid Autoimmune Disease (also called Rheumatoid Arthritis or […]
]]>By: Connie Garciahttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-311115
Mon, 29 Oct 2012 18:37:04 +0000http://rawarrior.com/?p=9576#comment-311115How about all the commercials for RA meds?
I’m just putting it out here!
If I see one more ad with a supposed RA-ridden person smiling as they go about their day, I will scream!!!
This further contributes to the confusion. We need there to be real people with the real disease talking about the ambivilence of choosing a medication that is truly a poison to try to have some semblence of a life. A person who knows how difficult those decisions are, to let someone poke you for an IV medication that can kill you, who know how hard it is to talk to your kids about these things..Someone who can barely move about, someone who isn’t smiling while they are in pain, or riding a bike! I’m sure that most of us can’t do those things even on a “good day”! We need the truth, no matter how difficult it is to see! Then we can have real support!
]]>By: Connie Garciahttp://rawarrior.com/we-refuse-to-be-mislabeled-updating-rheumatoid-arthritis-ra-to-rheumatoid-autoimmune-disease-rad/comment-page-2/#comment-311110
Mon, 29 Oct 2012 18:28:35 +0000http://rawarrior.com/?p=9576#comment-311110I completely agree that the name must be changed! The name must better reflect the systemic nature of this disease! There is so much confusion in the pubic about what this actually entails. That same confusion leads to all the “helpful” comments people love to give like “just us a heating pad” “that’s all my grandma does” “Just go gluten-free” “That works!” “have you tried xxx?”
We’ve tried it ALL, people!!!
Perhaps changing the name and increasing awareness will reduce the confusion and then we can have real discussions about our pain, fears, and hopes!
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