Organize

Having a strong, vibrant registry helps our community be better networked for clinical trials and helps researchers plan better for clinical trials. We need your participation to succeed. Join now!

Empower

Information is power, and a community-owned registry puts the power of data collection into our own hands. Whether you are a patient or a doctor, sharing your experience with FOP will help make us a stronger community and enable more and better therapeutic development. Join now!

Educate

There are many unanswered questions about FOP. Help us all learn more about FOP from each other, educate those outside our community, and ultimately enable better and more efficient development of treatments. Join now!