Category: Commentary

Wendy and Dean Fachon of Rhode Island join us to talk about state legislation, national resolutions and the legacy of their son Neil, making a strong case for “Right to Try.” Paul Miller from Colorado shares about the power of social media and the magic of belief, with 2 successful…

We get a first-hand look inside the controversial treatment program in Monterrey, Mexico, to which many DIPG families flock with the kind of determination that only an utter lack of solutions and hope can inspire. Kimberly Beauchamp, through an introduction close to the heart with her niece Kiera, discovered this…

What is it like when there is literally nothing they can do, when your child is ok one day, but after the next might never walk again? Jodi Jacobs tells it like it is for DIPG families, discussing what happened to her 7 year old daughter, Cheyanne. DIPG, often labeled…

Luna Zin joins us from her Utah home to discuss her first book, “The Heart of Luminous”, inspired by her research in the childhood cancer community, and by a special little boy in particular who lost his life to brain cancer. Luna takes us on a personal journey of discovery…

Ellie Waters visits with us from the UK to give us an update on her progress, cancer-free, and also gives a clear picture of the realities of teen life, having survived cancer. Team Ellie’s blog is prolific and her helpful influence on other children and teens is significant. Ellie speaks…

Two-time cancer survivor Steven Giallourakis joins us with his mother Angie to share their experience which inspired the Steven G. AYA Cancer Research Fund in Avon Lake, Ohio. Angie Giallourakis is President of the organization which has programs in wellness, education, research and advocacy for young people with cancer. “AYA”…

Jenny Mosier, Executive Director of the Michael Mosier Defeat DIPG Foundation joins us to discuss a 50-State Project for DIPG, calling for volunteers in as many states as possible to work for a gubernatorial or state legislature proclamation for May 17 2017 DIPG Awareness Day. The 2017 National DIPG Awareness…

There is a specialized killer on the loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. September 6, 2016 Dear President Obama, I’ve written to you a…

There is a specialized killer loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. Dear President Obama, …

CCTR interviews Jonathan Agin JD, father of Alexis who perished to DIPG in 2011 and 4 other young children, and official counsel and co-founder of the Children’s Cancer Therapy Development Institute. One of our country’s foremost advocates for children with cancer, Jonathan describes the complexity of our medical research system…