Rien, I forget to mention that I get my blood here in Florida every 3
months and everything looks good. I have got to Chicago only the first week
in
June each year..
Thanks,
greenie
In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time,
rien16...@gmail.com writes:

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Hello!
I stopped taking Gleevec after 13 years. I had my checkups every month,
but only in the first year. In the second year every two months and from now
on every three months for the rest of my life.
It seems that everybody reacts in a different way. I myself had more
bonecramps after having stopped than while taking Gleevec; but after the first
year it gradually went better and now I have these cramps only a few times
per year during the night. The swallen eyelids completely disappeared and
unfortunately, my face became a lot thinner. Another side-effect: my hair was
not grey anymore after havinig stopped, it is still dark, which was not
the case before. After all I am glad that I took the decision, the problems
of the first year will disappear, so I strongly advise you to do like I did.
Feel free to contact me for further information.
Greetings from the Netherlands - and let's be grateful that Gleevec
exisits!!
Rien
2017-08-05 19:18 GMT+02:00 Vivi <vkrei...@gmail.com>:
After seventeen years on Gleevec, and considered "in remission," my
oncologist asked me if I would like to stop taking Gleevec.
At first glance, this sounded spectacular but then she said:
"you'll have to come in once a month to be tested."
After deep thought (about twenty seconds), I said, "Talk to me about this
again in ten years."
Has anyone else stopped taking Gleevec after years of being "in
remission?" If so, how's it going?
What has changed in your life? Have any of the obvious physical
side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids,
abdominal fat) retreated or been reversed?
I'd appreciate any information other CMLers might have.
Best to all.
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email: rien16...@gmail.com
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