Now Kieron Griffin and Kyra Welch are determined to enjoy every moment they have left with young Kaiden Griffin and create memories they can all cherish for the rest of their lives.

And people can help by donating to a campaign raising money to enable all three to go on an extra special holiday of a lifetime to Disneyland, Paris. Kaiden, whose first birthday will be on June 29, successfully came through open heart surgery at Great Ormond Street Hospital just three days after he was born.

He was diagnosed with a range of complex heart problems, has been treated regularly at the London hospital and there was hope that he could make a recovery.

But the parents, both aged 19, have recently been told that Kaiden’s veins have narrowed.

An abnormal heart, lungs and veins have made the situation too complex for him to have another operation.

Miss Welch, who lives in North Creake, said: “We have no idea how long Kaiden has. The hospital told us to enjoy the time we have with him and that is what we’re going to do.

“I believe he could live for another two years. He will not have a long life but we are going to make sure he has a happy one.”

Miss Welch has gone through a lot of heartache in her own short life.

Her close friend, Ellie Loades from Colkirk, died aged 16 in November after losing her battle with cystic fibrosis.

Miss Welch organised a horse ride in North Creake in April in memory of Ellie which raised £2,468 for Great Ormond Street Hospital.

She said: “Everything has given me the outlook that I should enjoy life, take every day as it comes and not take anything for granted.”

She added: “It is impossible to not be positive when Kaiden is around.

“He is always smiling and laughing and making us happy and proud.

“The doctors say that, the way he is on the inside, he shouldn’t be here today.

“He is a miracle baby to still be here now.”

Mr Griffin said: “I don’t think the reality has hit us yet because, at the moment, Kaiden is still Kaiden.

“From the outside you couldn’t tell there is anything wrong with him and he isn’t in any pain or discomfort.”

The campaign to send Kaiden and his parents to Paris was started by a friend.

The original target was to raise £500 – and that was achieved in just a day.

Twelve days on, more than £1,000 has been raised.

Mr Griffin said: “I thought we’d never raise £500 but to do that in a day is amazing.

“People have been so generous and it makes you realise there are some nice people in this world.

“This could be a very special trip for us and I want to thank everyone who has donated.

“We are going to enjoy every day with Kaiden now – take him out to zoos and parks and make sure he enjoys the rest of the time he has.

“He was put here for a reason; he got through that first operation for a reason and that is to make people happy.

“On our train journeys down to Great Ormond Street he would smile and laugh with complete strangers. He would bring a lot of joy to people.”

Donations can be made to the campaign by going to https://www.justgiving.com/yimby/OurMiracleSonKaiden and you can learn more about Kaiden’s story by finding the page “Kaiden’s Big Fight” on Facebook.

A cake stall and raffle outside Santander in Holt on June 28 between 9am and 1pm will raise money towards the campaign.