Charity role for Henry

SEVEN-YEAR-OLD Henry Barlow (above) is helping to raise awareness about genetic disorders in children – despite having to live with a rare condition himself.

Henry, who lives in Bolton-le-Sands with his mum Jo, dad Criss and older sister Daisy, has Rubinstein -Taybi Syndrome, a condition characterised by short stature, moderate to severe learning difficulties, distinctive facial features and broad thumbs and first toes. But Henry does not let this stop him from living a full life.

Despite undergoing a major operation last year, he is helping UK charity Jeans for Genes raise awareness of childhood conditions.

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Henry, who lives in Bolton-le-Sands with his mum Jo, dad Criss and older sister Daisy, has Rubinstein-Taybi Syndrome, a condition characterised by short stature, moderate to severe learning difficulties, distinctive facial features and broad thumbs and first toes. But Henry does not let this stop him from living a full life.

Despite undergoing a major operation last year, he is helping UK charity Jeans for Genes raise awareness of childhood conditions.