Friday, August 07, 2009

Update on Genetic Study

Just a quick update to let you know that the CFS genetic study that I wrote about earlier this week is still actively recruiting participants and all of the information I posted earlier is correct. One person had trouble when she called, but I have double-checked with the research assistant, and she has no idea why that was. In any case, the phone number and e-mail posted earlier are correct, and they need more participants. If you have any trouble with that contact information, you can also try e-mailing Caitlin Smith at cksmith@uic.edu. She's the research assistant for the study and also the person who answers the phone.

3 comments:

You're not the only one - another reader was told the study was closed last week, too. Caitlin has no idea how this occurred - she's stumped - but she assures me they're still recruiting patients. Try her direct e-mail, as listed in this post.

I have had Chronic Fatigue Syndrome (CFS or CFIDS) since March 2002. My 19-year old and 16-year old sons also have CFS, and my older son also has Lyme disease plus two other tick infections. This blog is about how our family is learning to live with chronic illness, with a focus on living and enjoying our lives in spite of these challenges.