You Are Not Alone

Usher syndrome can be a lonely diagnosis. There is not usually a family around the corner similarly diagnosed. You are not alone, however. It is estimated that between 30,000 and 50,000 people in the United States have some form of Usher syndrome. There are literally hundreds of thousands of individuals that have a loved one with Usher syndrome.

So while it can be a challenge to connect with others, you are decidedly not alone.