Coping and support

As is true with other chronic diseases, living with scleroderma can place you on a roller coaster of emotions. Here are some suggestions to help you even out the ups and downs:

Maintain normal daily activities as best you can.

Pace yourself and be sure to get the rest that you need.

Stay connected with friends and family.

Continue to pursue hobbies that you enjoy and are able to do.

The prognosis for scleroderma has improved dramatically over the past 30 years as the ability to detect and treat many of the problems of scleroderma has improved. But if scleroderma makes it difficult for you to do things you enjoy, ask your doctor about ways to get around the obstacles.

Keep in mind that your physical health can have a direct impact on your mental health. Denial, anger and frustration are common with chronic illnesses.

At times, you may need additional tools to deal with your emotions. Professionals, such as therapists or behavior psychologists, may be able to help you put things in perspective. They can also help you develop coping skills, including relaxation techniques.

Joining a support group, where you can share experiences and feelings with other people, is often a good approach. Ask your doctor what support groups are available in your community.

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