Our CDH Story

This blog will follow our family's journey with CDH. Our second child was diagnosed with a congenital diaphragmatic hernia at a routine ultrasound around 17.5 weeks. I started this blog to not only document our journey, but hopefully help those that may have to go through this same journey in the future.

Monday, July 11, 2011

Well ladies and gentleman this will be my last post on my CDH blog. I am converting back to only updating our family blog.Any of my CDH family can feel free to now follow our family blog if you wish to continue to see updates on our entire family, including Garrett of course:www.thecaraviafamily.blogspot.com

Garrett contintues to thrive. He is still in the 11lb range somewhere and growing a mile a minute.Garrett will forever have some ‘health issues’.However his issues are minor compared too many CDH babies.As said by another CDH mom, “When you have a child with CDH you spend their entire life sleeping with one eye open.”She was exactly right.You always have to monitor their health and be proactive about issues as they arise.Once you are a CDH parent, you are ALWAYS a CDH parent.

I want to thank everyone that has read my blog as well as any one who reads it in the future. This link will always remain active for reference for future CDH families.Garrett is now a part of our family.CDH will always be a part of him; however I will never allow it to define him.So I decided to wrap up our CDH story.Ours had a happy ending. Fortunately he was a lucky 1 of 800 babies that lived this year.Another 800 babies died in the past year due to the CDH birth defect.In writing this blog I hoped to create awareness of a birth defect that I had never heard of until our diagnosis.So thank you to each of you who followed Garrett’s story.You all helped make this blog worthwhile.

Monday, June 27, 2011

Initially, OF COURSE, the doctors office said we should have the results from Garrett's re-newborn screen by the end of last week. When I called today to inquire, they told me it could take much longer that one week to get them back. I was a little suspicious when the other lady told me they would have them back within a week -- I thought that sounded to good to be true with the timeliness and I was RIGHT ON.

As soon as I know something it will be posted on here. Thank you everyone for being so concerned about little Garrett! I have a lot of texts, e-mails, etc., inquiring about him and the test results so I wanted to put this post up.