How our lives have been touched by preeclampsia, cerebral palsy, epilepsy, feeding tubes, failure to thrive and whatever else comes our way

Friday, July 2, 2010

Already 6?

When Carly says her prayers at night, she has been praying frequently for a puppy so that she can have an animal that is all her own. I have told her repeatedly that we do not need another dog so if she wants one she will need to ask Santa Clause and maybe he will bring her one. Yesterday was her 6th birthday. We had already had her party so we didn't have any big plans for the day. She and I went and got pedicures together and then went and had lunch. We were on our way to run a few errands when I saw something in the road- and nearly ran over it. I quickly realized it was a tiny kitten. I went back and got the kitten out of the road. Carly was so excited because the kitty "knew it was my birthday and that I wanted a pet of my very own." How could I tell her no? I couldn't and besides, he was super cute. Never doubt the power of prayer! She named him Cameron. We went by the vet to see how old he was so we could feed him the right thing and they said he looks to be about 8 weeks old. He is so tiny and so cute and sweet. He loves to snuggle. And the best part- he is already using the litter box! After giving Cameron a 30 minute flea bath and getting him settled we grilled burgers and had cake and that was about it. I cannot believe I have a 6 year old. She is so amazing and my life is so much sweeter because she is in it.

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The Cuties

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this....When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.