Where are the studies for long-term interruption?

Mar 29, 2002

I have been off of the drug cocktail for nearly two years now. Despite some nerve-wracking times, I think the results have been quite good for me and I'm grateful for this this break that just keeps going!
After an initial spike, my v/l has generally been 1,000-7,500. My cd4 count has also fluctuated, but has never dropped much below 400 and is currently 695 and trending upward.
I've visited several websites--including thebody.com (one of the best, btw, thanks to forums like this one!)--but no one seems to be studying or even tracking people like myself. I know we're out there,I read messages from them here occasionally.
What are we? Freaks? Lucky? Special? Why is it so difficult to find a trial or study that someone who is succesfully NOT taking drugs can participate in? All the ones I've found want participants to try drugs again, and I'm not interested in that... at least not yet.
Thanks for letting me vent. Even more thanks if you can point me (us?) someplace where our experiences can help others!

Response from Dr. Boyle

Actually, there are many studies currently underway to evaluate the safety of therapy interruptions. Some involve "pulse" therapy, some involve structured intermittent therapy, some involve structured treatment interruptions, etc. Ask your doctor, he may be able to provide you with more information

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