"A cure can't come fast enough and both quality of life and research needs to happen for these families to get through this," Davidson said.

She runs The Dragonfly Foundation in Cincinnati. The group supports hundreds of families as more than 800 children and teens fight for their lives.

"We see cancers of all kinds, it literally runs from prostate to melonoma to DIPG," she said.

According to the DIPG Collaborative's website, as many as 300 children are diagnosed with this rare form of brain cancer each year in North America and Europe.

The end result isn't good, with an average survival rate of just a year after diagnosis.

The DIPG Registry said because this form of cancer is so rare, it's difficult for researchers to collect enough information for new treatments.

The Tri-State has already given tearful goodbyes to children and teens fighting the disease.

Lauren Hill and Kyler Bradley are two names echoing that strength, hope and faith. Another, Huxley Williams, passed away Sunday, a year to the day after Hill passed. Williams was only 3.

The Dragonfly Foundation hopes to keep families in similar situations strong.

"We try to distract them and provide opportunities for comfort and joy and luckily Kyler's family was surrounded by a community and they are one of so many who need that community to rally around them," said Davidson.

She said other groups like The Cure Starts Now in Cincinnati are focused on raising money and awareness for these causes, in hopes they can save the lives of other young children battling cancer.