I was absolutely out of my mind. There was no one to direct me in this incredibly difficult journey until I met Elizabeth Webster. There are school personnel, medical personnel, physicians, but there is no one that has walked this path, no one that has had to learn to deal with this diagnosis 24/7. Elizabeth was that person. She connected me and encouraged me to attend events which is no easy task with a youngster. My family is truly in a better position because of her direction and support