We have found out through this process that there is definetly an order to things when working with insurances and hospice.

Please get EVERYTHING gadget, tool, assisted device you need or think you will need prior to enrolling with hospice. Once hospice starts (and I do encourage as they have been wonderful), it is nearly impossible to get approved for any tools, gadgets and devices.

Our lesson in all of this is think and plan ahead, timing really is alot of it.

Thank you, Liz. We did discuss this option, if we ever had to come to it.

For the most part my mom has been one of the lucky one's. Almost everything she needed we were able to get before being on hospice, now its just a few little things and her and her husband have decided to pay out of pocket for these incidentals (like a mount for the eye gaze mouse and new battery for her loaner pink dynavox).

I am certain though others are not as fortunate. Also, at this point in the disease progression, we cannot risk going off of hospice.

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