update on diagnosis

I posted in the week about possible trisomy 18 diagnosis. I had my specialist scan at kings college hospital in london and had it looked at by a few consultants. They all said that everything they have seen does point to trisomy 18 which means my boy will probably pass away shortly after or even before birth. Some can live for a few months. I had an amnio yesterday to test and find out for definate so i should no by Thursday. They also said that even if my boy doesnt have this he will definitely be severly disabled. To say i'm heartbroken is an understatement. I cant believe that within a week i'v gone from having a healthy baby to now b told i'm probably going to lose him. Honestly i am not coping well and dont know how i'l get through this.

I’m so sorry, I can’t even imagine what you’re going through. It may help to connect with parents who have children with similar diagnoses. Has the hospital provided you with any support from that perspective? It must be so much to take in. Sending lots of love x

I am so so sorry to hear this . I’m heartbroken for you. I’d really been hoping that they’d got it wrong. I don’t know how they didn’t pick it up at your 20 week scan. Sending you lots of love & hugs. I hope you have got lots of support around you. Xx

Our thoughts are with you and your family. So sorry that you're going through this. I agree, I'm astounded it didn't get picked up at your anomaly scan. Keep talking, we're all here and your family sound like they're surrounding you with lots of support. Xxxxx

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