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Author
Topic: Please Send Positive Energy (Read 9970 times)

Dear Friends here at AidsMedsAnother friend of mine has been having health problems. He has been HIV positive since 1985 and is (only) in his early 40's. He has survived an incredible number of opportunistic infections (TWO bouts with PCP) but is also infected with Hep B.Today he is in the hospital trying, once again, to recover from a serious health problem. This time its his liver. His doctor ( I was there when he was told this) said to him that the Cirrosis is bad enough that he would be considered for a liver transplant. His liver basically stopped functioning and his kidneys shut down. He wasnt making urine and his chest cavity filled up with fluid. He had to have the fluid drained off. He is now making utrine and by some miracle his liver function has improved a little. He was munching on a cinnamon bun and chatting when I saw him but his color is ghastly and he looks to be 9 months pregnant.Please send him all the positive energy you can spare. His name is Bob. We are hoping he will survive this.

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

my prayers go out to you and your friend. My God look upon you both and give you the strength that you both need to pull through this. it sounds as if he is a very strong person and as i said in my poz influrence on life one of those that can be and is a good example of what i mean.

may God love shine down and embrase you both.

roger

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beauty is in all of us we need to see beyond the physicla to the soul.

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Oh darn.I just got the news that he was not discharged yesterday. We were planning a trip to see him and found the latest email from Don, his partner, saying that the doctors decided to keep him in the hospital. Its his kidneys. They are "acting up".

I'm sorry he didn't get released, it's so frustrating thinking your going to be released from the hospital only for the doctors to change their minds but I'm glad they are keeping a close eye on him. I'll keep on sending positive energy that this may just be a bump in the road.

AA

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It is not the arrival that matters. It is the journey along the way. -- Michel Montaigne

The roller coaster ride is not over yet. Saturday, yesterday, he was finally released and went home. As soon as we see him, I will try to give an update.Thanks Ron.......yes, if anything happens at home its much harder to deal with. But....I think he probably would rather be at home.

I talked to both Don and Bob today. Bob said he did not want visitors today even tho I offered to bring him some goodies from the store. He said his kidneys are functioning and he can crap three times a day.His was pretty "doped up" when I saw him in the hospital. Today he says he is thinking more rationally.We told him that we had made reservatiuons to go to the gay campground for leather weekend in August again this year and hope he can come. Last year he went with us and had a great time.

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Today, Thursday, I have bad news. Bob is already BACK in the hospital. That sure was a short stay at home. So, we really need all the healing thoughts we can get going his way. He is in the hospital of the Univ of Pennsylvania in Philadelphia.Read the thread I started in "Off Topic" for a healing circle this weekend.Thanks

Today is Monday the 9th of March.....the update on Bob is that he is still in the hospital but is doing better and may go home tomorrow....he said his kidney and liver function is about normal...for him that is...since he has very little liver function left

I just got this email from Bob's partner:Not sure yet when he will be released; he wants to go home of course, but I want to be sure that the plan for taking care of him at home is in place. That was the problem last time; no plan for what to do if there are issues. and I don;t want to get home and then just have to bring him back in a couple days.

We have a great new doc who works with patients to help them with this and even better turns out he knows Bob's sister Kelly, so he is taking a very personal interest in helping us. They're also changing his meds around, adding ritalin to help him be more alert and Marinol to help with appetite and naseua.

I'll keep you posted.

Thanks for the invite for dinner the other day. If Bob is still here over this coming weekend, maybe will be able to do something Fri or Sat night.

The good news is that Bob is (still) at home.I talked to Steve yesterday and he thinks Bob is having blood sugar problems. Because he is arguing with Don about (taking) his meds. Anyway, we are going to see him tomorrow.

Saturday March 14Kurt and I just got back from seeing BOB. Iam so amazed at the improvement form the last time I saw him...which was in the hospital. His color is better and he was not at all "doped up". He was having lunch when we arrived about 1 pm. We sat and talked and watched TV with him until about 4 or 5. From what I gather he slept really well last night and has liver and kidneys functioning ok. Naturally its a step at a time. One day at a time. But today was good.

He had a fairly bad weekend. He had episodes during which he did not know where he was. Well, guess what. It was his meds being out of balance again and he was ok after the doctors adjusted his meds. (Dont ask which ones cause I dont know exactly but it has to do with his liver and kidney function.)As of Tuesday he was himself and even went outdoors to the garden. He is trying to plan an Easter dinner for his family there at his home. Isnt that great!

hey sorry to hear about bob. you know for you to be there for him says alot about you. you really are a true friend to be by his side. i have one friend like you and i know that if i ever end up in hospital he too would be there. I got to tell you that it is he (and my trust in My God) that keeps me strong and going. I will send my prayers and love to bob and to you to because you ask only for bob I think you to deserve special prayers to keep you strong and healthy for your friend.

So in closing I send hugs of peace and love to you and bob. My God bless the both of you and St. Jude keep you and your friend in good health

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beauty is in all of us we need to see beyond the physicla to the soul.

Bob has pulled through another incredible challenge. His counts ( this refers to his liver and kidney function) appear good. His CD4 counts has never been above 200 for the last 10 years. When I spoke to him last night he sounded really good and he is indeed planning to prepare a big EASTER dinner fior his family. Then, after Easter, I am going to go out to his house to do some painting. Seems he has now noticed the bedrooms need new paint. Lol. Well I guess if you spend enough time in one it kind of takes on new meaning...new paint , new energy.Isnt that great?

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts