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I received an email that you were following me. I haven't posted in a very long time because the only other APL patients seemed to be in remission and didn't want to post. You are the first with my diagnosis in over 2 years. If you need any information from me, please post. I received my diagnosis 12-12-2013, spent 23 days inpatient at MD Anderson Cancer Center in Houston, and was in remission 1-8-2014. I was treated according to a protocol for a study which included ATRA and arsenic trioxide. MDA has a very specific and highly effective protocol. I am lucky to live close to Houston since my hospital admission was an emergency. I put off the bone marrow biopsy because I was afraid of the procedure and especially of the results. I finished treatment in August 2014, have had frequent checkups, but am now down to one every 6 months. I am concerned that you were diagnosed over a year ago but are still in active treatment. If you need information or encouragement, please post again.

What is that Goodwill number?

The Goodwill number is one way you can tell how helpful each WhatNext member has been in providing information that may help others in the network. Someone with a “0” by their name may mean that they are new to the network, while someone with a higher number means that they may have either posted more information in their journey, asked questions and/or provided answers that others may have “liked.” Your number can change daily based on your contributions and involvement.

As you get involved and contribute on WhatNext, you’ll be recognized with the following badges:

0 - 500

501 - 1499

1500 - 3499

3500+

Please help us spread the word about WhatNext so more people can find more relevant matches, gain more insight and feel a little less alone.