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Monday, 27 May 2013

Waiting...

It seems that Heidi does, indeed, have Kawasaki’s disease.
She received the treatment yesterday afternoon into the night and since then,
her temperature has not reappeared. It is reassuring to know that we have
finally found what we are dealing with, it is scary to know how long it has
been left untreated.

We are hoping to get an appointment at the Brompton
tomorrow, so that Heidi can have an echo done. Then we will know how much, if
any, damage has been done to her little heart.

The disease can do no more harm now, but as our consultant
says, the die has been cast in the 15 days up to Heidi’s treatment (ideally
Kawasaki’s is treated between days 5 and 10), so we wait, with bated breath,
with tears, but also with the comfort of the Saviour, to find out what damage
has been done.

We pray none.

Today she seems happy and healthy, cheery and chirpy; the
little girl we had before this whole experience. And I’ll admit it hurts; it
does hurt to know this is all it has taken to make her better. A Doctor friend
of ours raised the alarm a week and a half ago and we questioned, but she was
not showing the usual symptoms and so the disease has been left for 15 days, to
do what it wanted to do.

I would feel desperate, hopeless, resentful and despairing
were it not for the knowledge that we are totally held in the Father’s hands.
That this whole journey has a purpose. As a friend from church, who herself has
known a lot of heartache, said to me today…

God is too wise to make mistakes and too loving to be unkind.

We cling to that truth as we
wait.

Please pray that somehow the
disease will have avoided her heart. Pray for any issues to reveal themselves
quickly so we can begin the potentially long road of treatment. Pray for
strength. And faith. And hope.