What will happen if my child takes part in this study?

If you choose to take part, we would ask you or your child to complete a brief questionnaire.

Your child might also be eligible to complete a 1-hour study visit that involves:

Questionnaires

A brief physical exam

Collection of blood and urine samples

We can often do just one blood draw for both your research and regular clinic visit to avoid an extra poke. Your child’s provider would receive the lab results.

If your child has participated in SEARCH in the past, they might be eligible for a follow-up visit. Many of the measurements taken would be the same as before, and some would be new. This follow-up visit would include:

Questionnaires (can be done over the phone, by mail or in person)

A brief physical exam

Collection of blood and urine samples

Testing to look at the function of various body parts such as nerves, blood vessels and eyes

Remote Access

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.