Hello Iīm new in this site. Iīve find this site on one of my researches and i think this is very helpful. Because my baby with 25 days now saddly was born with an AVM in her right forearm that is causing lesion on her radial bone. Doctors said that we need to wait and see what is the evolution of the lesion but i was hoping for a second or third opinion to see if anyone knows anyone with this kind of AVM. The doctors donīt have certain about whats going to happen and because iīm from Portugal there arenīt many doctors with experience in AVM.
I already have sent a message to doctor Rosen 2 weeks ago but i didnīt get any answer yet. How long we usually need to wait for an answer?
Iīm just a father looking for the best treatment for my little baby.
Thank for your time.
Best regards.

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy

Hello Missy

Ok thank you so much for your help.
I already tried an european expert in liverpool but still no answer
I sent Dr. Rosen a message because iīve read that he has experience in AVM in the arms or legs and i hope he can help our family.

Mission Statement:
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.

DISCLAIMER
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.

Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.