tag:blogger.com,1999:blog-447392662850613354.comments2016-12-08T06:44:05.939-05:00Special needs disability parenting BLOOMBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger4536125tag:blogger.com,1999:blog-447392662850613354.post-35252627202399684392016-12-07T17:08:15.386-05:002016-12-07T17:08:15.386-05:00What a great book project! I&#39;ll make sure I f...What a great book project! I&#39;ll make sure I fill out your survey - thank you for the opportunity to add other family voices.<br /><br />I used to coordinate a peer support program for families who had a baby with a new diagnosis of Down syndrome. One of our most common questions was: will people stare at us in the mall? I used to always say: yes, some people will. Other people are too busy to even notice you. Others do express the disgust or fear you talk about. But there is a certain percentage that smile a knowing smile, engage with my son in some way - those are the ones I told families to remember. These are the folks that matter. <br /><br />But thank you for deeply exploring this super important question. sue robinshttp://www.suerobins.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-74478963342191758952016-11-30T14:18:52.685-05:002016-11-30T14:18:52.685-05:00I had a conversation once with a friend of mine wh...I had a conversation once with a friend of mine who is French, who is currently about 40 years old. He had no memory of kids with special needs in his community or schools growing up, and didn&#39;t know where the children would have been educated. He was genuinely puzzled by this model, once I asked about it. Liz the PTnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-5313769558746124692016-11-29T10:39:50.265-05:002016-11-29T10:39:50.265-05:00I am so afraid of my son&#39;s future. Until our ...I am so afraid of my son&#39;s future. Until our world values people with differences (including ability, especially of the intellectual kind), these types of abusive practices are going to continue on as &#39;normal&#39;. <br /><br />I fear the world is going BACKWARDS in our evolution of tolerance, acceptance and celebration of people who are considered &#39;other&#39;. The more &#39;dog eat dog&#39; we become, the less we care about the most vulnerable. <br /><br />I realize I have nothing useful to say, except to communicate my despair about the news relayed by this sad article. sue robinshttp://www.suerobins.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-56781869210742146582016-11-26T01:06:37.875-05:002016-11-26T01:06:37.875-05:00Hi, I just received a ACSD they are cancelling the...Hi, I just received a ACSD they are cancelling the benefit because I exceeds the maximum for the program. What should I do. I&#39;m a contact personal support work I only work for hourly in home care. My job is not stable when client pass away or hospitalized I lose hours I want to do internal review but I don&#39;t know how to make is strong to prove that I need this benefit. Can I please get so advise please. Thank you. Jackie Kwanhttp://www.blogger.com/profile/16223913121720335716noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-55899645746040901262016-11-15T14:56:43.602-05:002016-11-15T14:56:43.602-05:00Thanks Alivia so much for telling your story! I le...<br />Thanks Alivia so much for telling your story! I learned a lot because you shared your experience. I think you may have a career ahead of you in journalism or creative writing! I unexpectedly felt the waterworks start too, when the realization struck - you could go home! Bittersweet - but mostly sweet I&#39;m sure. Thank-you for your compelling &#39;story&#39; of perseverance &amp; courage. Very inspiring.<br />MollyMolly Malonenoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-66981819159919778712016-11-14T13:56:20.247-05:002016-11-14T13:56:20.247-05:00For once, I don&#39;t even know what to say. This...For once, I don&#39;t even know what to say. This makes me feel overwhelmingly sad, not just for my son&#39;s Down syndrome community, but for a world that is moving more and more towards the exclusion of &#39;the other&#39; and a world that does not celebrate (never mind value or even tolerate) diversity of many kinds, including intellectual disability. <br /><br />Prenatal screening rates are high in many European countries, including France: https://www.washingtonpost.com/posteverything/wp/2015/06/16/down-syndrome-screening-isnt-about-public-health-its-about-eliminating-a-group-of-people/. Women deserve to have as much information as possible in order to make an informed decision about screening, testing and termination...and that includes information about what it is like to have a child with a disability. This commercial offers a sliver of an insight into that life - by banning it, they are denying women the information to make a truly informed choice. sue robinshttp://www.suerobins.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-11894460027776275072016-11-12T09:56:33.109-05:002016-11-12T09:56:33.109-05:00Shameless plug.....Shameless plug.....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-86946084255478755932016-11-12T09:20:47.264-05:002016-11-12T09:20:47.264-05:00Steph, thank you for your kind words.Steph, thank you for your kind words.Sharda Ali-Ramjattannoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-61017229668086871482016-11-12T09:19:12.856-05:002016-11-12T09:19:12.856-05:00Thank you Lori. I am so happy that I took that fi...Thank you Lori. I am so happy that I took that first step in becoming a Family Leader, it&#39;s an exciting learning experience for me and I also get to contribute to such a great program.Sharda Ali-Ramjattannoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-39458457266344315942016-11-11T15:06:10.595-05:002016-11-11T15:06:10.595-05:00You are an amazing mum, and a strong family. Glad ...You are an amazing mum, and a strong family. Glad that things have worked out well for you xSteph Curtishttp://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-85943968866839749372016-11-11T14:36:29.864-05:002016-11-11T14:36:29.864-05:00Sharda, we are so fortunate to have you as part of...Sharda, we are so fortunate to have you as part of the Family Leadership Program and on the Research Family Engagement Committee.<br />Thank you for sharing your story and for letting others meet Salina through your words. Thank you!Lori B.noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-28870690032061472342016-11-10T09:37:38.816-05:002016-11-10T09:37:38.816-05:00Alivia!!!It was so nice to read this, and hear abo...Alivia!!!It was so nice to read this, and hear about the rest of your journey. I absolutely loved working with you, and your family. You always tried so hard, even when you were feeling sad or unwell. I am so proud of all you have achieved and can&#39;t wait to see all the things you can do now.<br />Jill :) Jilliannoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-17494209530836032152016-11-09T06:16:28.529-05:002016-11-09T06:16:28.529-05:00I really enjoyed working with you Alivia and helpi...I really enjoyed working with you Alivia and helping you along in your journey to recovery. It was wonderful to read your story.<br /><br />Judy ChlebakJulie Wrighthttp://www.blogger.com/profile/06029016997329899990noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-39350554637139266612016-11-08T23:24:39.331-05:002016-11-08T23:24:39.331-05:00Thank you all for your kind words and prayers. I m...Thank you all for your kind words and prayers. I must say though, while this journey is a challenge, it&#39;s also one I cherish and enjoy because I was blessed with a sweet angel. Sharda Ali-Ramjattannoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-29511393239957739362016-11-08T16:22:59.728-05:002016-11-08T16:22:59.728-05:00Thanks for sharing your journey so far Alivia! You...Thanks for sharing your journey so far Alivia! You seem to have gained a lot of wisdom along the way. I was really able to relate to some of the emotional and physical aspects of your journey. Your attitude towards recovery makes a huge difference and I wish you all the best! Irene Trannoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-10004356131850501982016-11-08T13:46:05.943-05:002016-11-08T13:46:05.943-05:00What an inspirational story!
Sharda, I am deeply...What an inspirational story! <br /><br />Sharda, I am deeply moved by the story of your family&#39;s persistence, resilience and motivation to do the best by your children. Thank you so much for sharing your journey with us and allowing us to see the world through your eyes. Wishing you, Danny, Saeed and Selina all the best.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-76465482479028001382016-11-08T09:29:09.073-05:002016-11-08T09:29:09.073-05:00Dearest Maddy: I continue to be impressed with you...Dearest Maddy: I continue to be impressed with your grace and humour. You face challenges head on with quiet determination and seemingly endless patience.<br /><br />You are indeed an inspiration to everyone around you!<br /><br />Thank you for sharing your blog.<br /><br />Best wishes for a healthy recovery.<br /><br />Much love,<br /><br />Mrs. M.Kathie McCrackennoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-92050518326843422142016-11-08T06:02:37.131-05:002016-11-08T06:02:37.131-05:00I&#39;m so proud of you as a parent and as a woman...I&#39;m so proud of you as a parent and as a woman. I admire your strength and courage to make the right choices for your beautiful daughter. You are making a wonderful difference.<br />Zyda Mohammed-Jimdarhttp://www.blogger.com/profile/02439784400720172652noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-90569613704637209802016-11-08T02:44:30.196-05:002016-11-08T02:44:30.196-05:00Maddy, ever since I met you and had the remarkable...Maddy, ever since I met you and had the remarkable pleasure of teaching you and learning from you, I have been so impressed and humbled by the positive energies and attitudes you live your Life with. Your smiles, laughter and jokes have brightened my days when I have been less than joyful. You have a way of making a moment beautiful. Thank you. I hope your surgery goes well and that you can get back to being a less troubled teenager soon. Favourite sub-atomic particle?....Proton, because they are always so POSITIVE!! Cheers, Mr. G-L :)Scott Grigsby-Lehmannhttp://www.blogger.com/profile/17515749687743872112noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-23689966183117679602016-11-07T21:46:58.263-05:002016-11-07T21:46:58.263-05:00You have done a great job and still doing so far. ...You have done a great job and still doing so far. I am very proud of you for keeping the faith, it&#39;s not easy to do what you have been doing but again you are doing great keep it up.Sandy Lackrajhttp://www.blogger.com/profile/13703357293117544232noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-6595737595274051732016-11-07T21:45:15.581-05:002016-11-07T21:45:15.581-05:00You have done a great job and still doing so far. ...You have done a great job and still doing so far. I am very proud of you for keeping the faith, it&#39;s not easy to do what you have been doing but again you are doing great keep it up.Sandy Lackrajhttp://www.blogger.com/profile/13703357293117544232noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-75516222189475284652016-11-07T21:37:36.570-05:002016-11-07T21:37:36.570-05:00Excellent strides Sharda this is nothing short of ...Excellent strides Sharda this is nothing short of what you naturally have inside you. You excel anywhere and with anything. You&#39;re surely an inspiration to us all. Congrats to you and your family.Love from Kelly Vlg. Trinidad Missey Bassanthttp://www.blogger.com/profile/15072255205513267964noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-39250575999146657362016-11-07T21:37:11.582-05:002016-11-07T21:37:11.582-05:00Excellent strides Sharda this is nothing short of ...Excellent strides Sharda this is nothing short of what you naturally have inside you. You excel anywhere and with anything. You&#39;re surely an inspiration to us all. Congrats to you and your family.Love from Kelly Vlg. Trinidad Missey Bassanthttp://www.blogger.com/profile/15072255205513267964noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-12609303545680955462016-11-07T21:24:05.447-05:002016-11-07T21:24:05.447-05:00Thank you, I feel very lucky to have been given th...Thank you, I feel very lucky to have been given this opportunity.Sharda Ali-Ramjattannoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-37083049439939170652016-11-07T15:12:17.061-05:002016-11-07T15:12:17.061-05:00
Awesome job on becoming a family Leader
<br /> Awesome job on becoming a family Leader<br /><br /> Anonymousnoreply@blogger.com