Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

Do people wear medical alert IDs?

I've had some recommendations to get a medical alert ID and some that it's not necessary. What do the rest of you think?

Just as background, I currently "only" have a mild case of Lupus and it's not affecting my internal organs (hopefully it will stay that way). If all the meds work (fingers crossed) I should only be on placquenil long term. I am still working, so I want to be safe, but I don't want to alert all of my colleagues to my condition either.

I'd like to hear other people's opinions and ideas as to what sort of medical info they carry/if they have the alert IDs etc.

I don't wear a medical braclet, but I do keep a list of my medications, diseases, Doctor's info, and who to contact in an Emergency. I keep it with my insurance ID's, and license. It came in handy when I was in a car accident a couple of years ago. The Paramedics used it to inform the hospital.

I should wear a medicalert bracelet more than I do. Anyone taking steroids, for example, should wear one because suddenly stopping steroids (were you unconscious, etc) could lead to a potentially fatal condition called adrenal insufficiency. If you're in a car crash, your wallet/purse can fly out and not be recovered for a while. I hate wearing mine, though, because it does invite those questions &quot;Oh, are you allergic to penicillin?&quot; To that, I reply &quot;yes.&quot; It's true, but that's not what's on my bracelet. I have found some bracelets that are made to clip onto the medallion part of the medicalerts. They can be beaded and pretty. The medallion stays on the underside of your wrist because it's heavier. I don't have any right now (the one I had broke), but I think they're a good idea. They look like jewelry to most people, but paramedics are trained to look for them.

&quot; I dont but I was told by my doctor that I should because since Ive been diagnosed I have found out I'm allergic to most common used drugs like: penicillin,aspirin,codiene so far that I'm aware of and who knows what else. But this is a great idea.

If you are on steroid therapy I think it is a must as if you were in a car accident you would not heal that well without them adding steroids after surgery. I always wear my bracelet and never take it off.

Hi all! This is for those of you that have or have had the same neurologist for 4 years or more. I have been with mine now since 2009. He is one of the best movement disorder secialists in the midwest. I know he is extremely busy on the lecture circuit now and in fact not taking new patients there is a huge waiting list for him. BUT.... I feel like my visits are not what they use to be. He...

theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??

All content posted on this site is the responsibility of the party posting such content.
Participation on this site by a party does not imply endorsement of any other party's content,
products, or services. Content should not be used for medical advice, diagnosis, or treatment.