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A public health priority

Promoting rare diseases as a public health priority is one of the most important stated objectives to EURORDIS. With this in mind, we have come to the conclusion that a further step to take is to actually clarify what rare diseases are as a public health concept.

Clarifying the concept of rare diseases

To clarify the concept of rare diseases as a public health issue, we took the initiative to create a unique document covering all aspects of rare diseases "Rare Diseases: A Public Health Priority".We encourage everyone to use this document, especially at the national level.