Wednesday, May 09, 2007

DOWNSIZE ME Update...

Just a quick post before I head off to bed (without any tranq's tonight since I have to get up at the crack of...you know...for a staff meeting). Tomorrow begins what is otherwise known as "hell week" as I start off the beginning of a five day stretch of DAY SHIFTS with a staff meeting as the kick off. LOL

I had every intention of going to the grocery store today and "pre-purchase" my ice cream, malt, and chocolate syrup for the "end of Downsize Me" bash I plan to have on the weekend...as I said, I HAD every intention. LOL But then the thought occurred to me, if I had these items in my home, I might not make it to the weekend...so I didn't go. I went clothes shopping instead (which is akin to having a root canal for me!).

I spent today...my one day off before working a straight 5-er (and please DO remember...I don't work a NORMAL set of hours. My days are anywhere from 9 - 10 1/2 hours long...yes, I'm whining.), completing chores around the hut, shopping for some much needed garments, repotting plants, and trying to enjoy the anomaly of something called "sun" outside in Seattle. All in all, it was a good day...and my fatigue level is sooooo much improved right now.

As you can tell by the "scientific" graph above, I HAVE been sleeping more and my fatigue level is less. Weight and blood pressure continue to remain constant, but that's OK. Who knows...once I binge on my homemade malt, I may just return to a caffeine-less diet (operative word in that sentence is "may". LOL)

I only hope this stretch of day shifts doesn't KILL me...or worse, that the days suck my will to live...LOL...

2 comments:

I will be interested to see how your getting up early for the day shift works for you without caffeine--good luck facing the early morning without that boost of Mountain Dew! May you be a burst of sunshine for your coworkers!

Survivor MS

HAWAII 2014 PARASAIL

EMAIL:

LOCATION:

Seattle, WA, USA

AGE & OTHER TRIVIA:

53/female/Leo

DIAGNOSIS:

Relapsing & Remitting Multiple Sclerosis--Diagnosed 04/15/2003--(because having to pay taxes that day just wasn't enough!)

MEDICATIONS:

I have taken Copaxone, Avonex, IVIg, Tysabri, and 5 doses of Novantrone in 2007. I also participated in a Rituxan Study in 2005-2006. In the fall of 2007, while still on Novantrone, I began having "break through" symptoms, which became more and more frequent. In March 2008, I had an MRI that showed many enhancing lesions--Novantrone was no longer effective. Tysabri had been discontinued in November 2006, due to a questionable "anaphylactoid reaction". I received my first restart dose of Tysabri on April 8th, 2008, without experiencing ANY allergic response...I completed 9 doses of Tysabri in 2008, but continued to have some relapsing symptoms. I have, since December 2008, stopped all Disease Modifying medications and feel great...but don't tell my neurologist!