February 26, 2007

I infused Kyan for the first time by myself!!!!!!!!!! YEAH!! And I didn't screw it up. Of course this wasn't the face he was making while I did it. It was more like screaming and tears streaming down his face. This picture just represents my feelings after it was over. LOL!!!

February 20, 2007

Kyan had his port surgery. It went really well. In fact the insision is already healed up. Yesterday I tried to stick the needle in his port for the first time. "Tried" being the key word. I didn't anticipate that it was going to be that hard to push thru. So I freaked out and passed the needle off to the nurse that was helping me. She explained that not only does the needle need to pass thru the skin, it also needs to pass thru the rubber of the port. I didn't realize that, so sticking a needle in a port is going to be a lot different then just sticking it thru skin. Plus it isn't a regular needle, its a huber needle (its angled). Hopefully next time I won't freak out and be able to do it. We are having home infusion nurse start coming to the house twice a week to help me. Which hopefully will work out wonderfully, so that I don't have to make that trip to Palmetto Richland anymore. Not that I don't just love the nurses at the Blood Disorder Clinic. I have bonded with them so well of the last couple of months. It will be strange not seeing or talking to them as much as I did before. Well I better run. Kyan is awake from his nap and I am off to the post office. I will write more later.

February 14, 2007

February 05, 2007

February now and I never post anything anymore. Well I have a pretty good reason. Things have been really crazy here lately. Kyan has been in and out of the hospital a lot lately. He was admitted last weekend for a tongue bleed. It was really SCARY!!! He lost so much blood that he was pale and lethargic etc. He ended up getting stuck 15 times while being in the hospital. I am not sure what has brought on his poor vein access lately. Maybe the frequency of his bleeds. His hematologist finally said it was time for a port. So we go back to the hospital this Friday the 9th for port surgery. I am nervous and excited at the same time. The port should allow us to have some much needed normalcy! But at the same time I am apprehensive of having him cut open to have it put in his chest. Plus now I get to be the bad guy and have to stick him now. It was nice to have the nurses get that bad reputation of being the one who sticks and mommy be the one who just cuddles him afterward!!

My sister and mom are coming down to help w/ Nevaeh. Trey gets another group of soldiers on Thursday, so he won't be around much. Well I will try to post more another day.