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Supporting
each other

We are a network of friends
who share experiences of surgery for epilepsy. We mainly
communicate online via Facebook but often organise meetings
so members get the chance to socialise, something these
sufferers often miss out on. Also our aim is to create a
positive voice about epilepsy as a whole and meeting each
other directly gives sufferers the chance to socialise and
create a positive voice.

Group introduction

We are a network of friends
who share our experiences of surgery for epilepsy. Being
part of such a positive group gives all members lots to be
proud of. Being a candidate for this type of surgery is a
scarey time for both the sufferers and their families. It
brings with it lots of unanswered questions and the only
people who can often answer such questions is people who
have been there. This is where we come in and give our
support and help ease the anxiety of everyone concerned.

How would this funding have an
impact on your community?

So far all the activities and
marketing we do is all self financed. Me as the leader has
to fully pay any money upfront for any marketing and
merchandise to help the group grow. Some committed members
of the group do help me by purchasing items off me for the
price I bought them for such as for T-shirt. Any smaller
items of merchandise I usually give out as a gift from me as
the cost would be embarrassing to ask members for. If we was
to get funding from somewhere to buy more merchandise it
would help us to reach even more members and raise even more
positive awareness.

"Anthony Williams had
successful surgery for epilepsy which completely changed his
life. He is so pleased with the result that he now leads
this
group which is aimed at helping the very people who himself once
found himself in."