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What I find is the frustration of how little rosaceans want to do something about this for themselves and band together and do something about rosacea research. They opt out that some magic pill or topical will be found to resolve their issues. Do they want to band together and do something about encouraging novel rosacea research?

Rosaceans allow the NRS to spend 60 cents of every dollar donated to be spent on two private contractors owned by the director of the NRS and only spend 10 cents on rosacea research. No one cares. This is frustration to me. Rosaceans want someone else to do it for them. I have brought together over 1170 members into the RRDi and hardly anyone posts. I have made it so that anyone can hide behind a cryptic display name and never reveal their identity or contact information and still no one hardly ever posts. And what about funding their own rosacea research? Last year the RRDi received absolutely no donations. In 2016 if it wasn't for Demodex Solutions we would be close to running out of money. This year we have had $60 donated from three contributors. The RRDi can't fund rosacea research unless we get volunteers and donations to do this. Wouldn't it be nice to fund your rosacea doctor say $15K to do some novel research on neurogenic rosacea? You try to get the money to do this, and I can tell you from experience that this isn't easy to do.

If others don't volunteer and work together for rosacea patient advocacy then rosaceans deserve what they get with the NRS and the AARS which are the only non profits doing any rosacea research. And what kind of research do these organizations do? Who donated primarily to the these organizations? Pharmaceutical companies. And what kind of research do they engage in? You guessed it. Here is a quote from my book I wrote in 2007 on page 82:

"Dr. Kligman mentions the 'indifference of the National Institutes of Health, which with an annual budget of nearly 30 billion dollars, has not seen fit to fund a single grant for the investigation of rosacea.' Dr. Kligman also says that most research done on rosacea is by the skin industry which is 'voluminous literature, mainly focused on treatments sponsored by commercial interests; perhaps not the most credible source of unbiased research.' ”

If rosaceans what to be novel and fund any kind of research they want to engage in they will need to be united, volunteer and obtain donations to be used in novel rosacea research. Lizzy, are you able to volunteer? Sure could use the help.