I have to say that we DID do a lot of research on Y 90 and I haveto say that I asked for people's advice, help and personal stories(of which we got the 2 or 3 you mentioned.)

Here, on this board. TWICE.

I should probably leave well enough alone but OUR HUGE frustration with this board is that we come here seekingadvice and help and opinions from people who are going throughthis...

almost each and every time I post a question, hardly anyoneanswers (which of course is not very helpful)

when we ask for "real life stories", almost no one ever answers.

We are almost always pointed in the direction of hard to understandand complicated medical journals which are not helpful to "lay people"like us. I'm sorry that we're not as smart as some of you here onthis board.

Which is why we come looking for practical help--real answersfrom real people fighting this cancer. And mostly I feel weget a lot of fluff and silence. (After speaking with 4 doctors FIRST)

I truly and sincerely wish that more people, REAL PEOPLE, wouldpipe in with advice, personal stories and helpful answers ofWHAT THEY EXPERIENCED.

I feel extremely frustrated that IF Y 90 is a "last resort" and has almost all "bad outcomes" that when I asked weeks and weeksago, SOME ONE WOULD HAVE BEEN KIND ENOUGH OR BOLDENOUGH TO ANSWER MY QUESTION HONESTLY.

We come here making (LITERALLY) life and death decisionsfor people we love, looking for help--and (I personally) don't feel like I find very many answers here.

Sorry for the vent...feeling VERY (!!) frustrated that we have nowdone a "bad thing, last resort thing with almost all badresults" on my husband....

And the one place where I could have found some real lifeHELP---and no one felt obligated or like helping us BEFORE handwhen we were BEGGING for some good answers to helpmake this decision.

He has Stage 4 CC, one main liver tumor...mets to 2 regional lymphnodes and tiny ones in right lobe of liver.

After 8 months of Gem/Cis (to which he has responded very well, overallabout 66% shrinkage to liver tumor, lymph nodes don't show any uptakein PET scan and lungs have remained basically the same) andafter mtg with 3 diff Drs here, they/we all decided this was the nextbest step to take.

As a plan of attack on his main liver tumor. He will receiveone dose of Y 90 on his tumor (since he doesn't have any othertumors--often this is a 2 step procedure)

I emailed Willow about her sister and Y 90, but am curious to hearany other personal experiences with it. (I am NOT looking formedical stats/jargon/or medical journal articles--we have readall of that)--- we are mostly just curious if anyone here (or a lovedone) has had it and how they felt afterwards as far as symptoms,sick, tired, etc.

If anyone has any experience, we would love to hear it froma first (or second hand) account!

Kyle looks well and feels well and we feel super lucky thathe has had a great response with chemo as we know thisisn't always the case.

Hoping for good results with Y 90 as well.

I said it feels like we're "rolling the dice" again and we willsee what happens.

Thanks to anyone who has anything to share with Y 90that has been through it!

Hydration is important....but they do a mighty fine job of pumping you fullof hydration WITH the chemo. It is all administered at the same time...bags and bags of fluid and fluid for steroids and fluid for chemo and fluidfor flushing kidneys...etc.

My husband has been on Gem/Cis for 8 months straight and prettymuch FLOATS out of chemo with lots of potty stops all day long, on the way home and all night.

The first round seems to be the worst mentally, at least it was for us --since it is SUCH an "unknown". After a round or two, we feltlike old pro's and the hospitals/nurses/drs have this system downto a science.

best wishes...it's a scary and hard place to be.hoping your daughter sees really great results from this cocktail!Dorien (and Kyle) Nielson--Kyle, my husband is the guy with the cancer

I've shared before my husbands story. He is stage 4 (with mets to lungsand lymph nodes and one main liver tumor). He was diagnosed in Marchof this year.

We want QUALITY of life as well as much QUANTITY we can get while stillhaving QUALITY....does that make sense?

He is 44 years young with 4 kids. We figured we had nothing to loose-either the chemo would work or it wouldn't.

We feel so lucky that chemo DID work in my husbands case. We are8 months into Gem/Cis and have had NO NO NO bad side effects so far....other than very tired the day or two after chemo. NO nausea, no hair loss, nothing "bad" at all. AT ALL. I know this is not the casewith everyone, but this is our case.

So for US? It was worth it...he has had 8 more GOOD GOOD GOODmonths with me and 4 kids. He has enjoyed life, worked, vacationed, etc.

I would not trade that time for ANYTHING.

If it had not worked (chemo) at least we would have tried.

I think if you choose to try it and have bad results you can ALSOchoose to quit chemo, there is no right or wrong answer.

You could have fabulous results and buy yourself some good yearsof life. So for me, the answer would be at least give it a shot.

(I KNOW IT'S NOT MY ANSWER TO GIVE THOUGH!!)

You can also choose to not do chemo--it's a very personal decision.

For me and my house? We are glad we tried, we are glad we havebought time, we are glad he has had WAY more great days thanbad days and we are glad he's still here.

This can (and with this cancer WILL) change at any point in time--but there is no price I could put on having Kyle here with ushere and now.

Best wishes with your decision....You will make the right one for YOU.

I would love an easier way to find/see if posts have been updated (not sure how)--

for example when i sign into facebook it shows me how many commentshave been added to any post i commented on and who said what.

here it is often impossible to find an old post and see who said what.

Meaning there is nothing to notify "ME" that "I" have responsesto MY question and my post. Does this make sense? (I know it shows"new activity" on posts, but this site has no way to notify me of answers to my questions)

Posts that I have asked questions on seem to get lost in the shuffleand it is something I know is possible (again not sure how, i am 100%NOT computer savvy) because other message boards i belong tooffer this option (or it just "is" something that updates automaticallyand shows me when I sign on.)

I would also LOVE the option of a personal message box here on theboard without having to thru emails.

I belong to a handful of other message boards that have done thisfor years---so i know it is possible and seems to be a "built in" featureto many message boards I belong to.

Markwelcome. I will say that some people have "luck" with the gem/ciscombo shrinking the tumors. My husband (who is stage 4 with mets. tolymph nodes and lungs) has seen 66% shrinkage of his one main livertumor. At last PET scan his lymph nodes showed no active cancer at alland his lungs nodules have also gotten smaller. Those are all goodthings in our book with this cancer.

We are thrilled with that response. his side effects havealso been MINIMAL on this chemo as well. So while we know that it is not a cure, it is buying him time. Time is a good thingand his quality of life has remained wonderful.

Pati would only echo jason...my husband kyle is young (44) and hasstage 4 inoperable. he was diagnosed in March of this year.

He has been healthy his entire life. He just finished his 19th infusion(looks like he's one ahead of andrea) and has done REMARKABLY well. his worst side effects have been tired for the 2 days afterchemo as well.

I just wanted to give you one more positive chemo story to lookat and hear...obviously the decision is your very own to make, butplease know some people respond VERY well to the gem/cis combo.take care.Dorien

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The information expressed is not medical advice. The discussion boards are not intended to replace the services of a trained health professional or to be a substitute for the medical advice of physicians or other healthcare providers. Read the full disclaimer.