Prognosis (Outlook)

Most cases of Sturge-Weber are not life-threatening. The patient's quality of life depends on how well the symptoms (such as seizures) can be prevented or treated.

Patients will need to visit an ophthalmologist at least once a year to treat glaucoma. They also will need to see a neurologist to treat seizures and other nervous system symptoms.

Potential Complications

Abnormal blood vessel growth in the skull

Continued growth of the port-wine stain

Developmental delays

Emotional and behavioral problems

Glaucoma, which may lead to blindness

Paralysis

Seizures

When to Contact a Health Professional

The health care provider should check all birthmarks, including a port-wine stain. Seizures, vision problems, paralysis, and changes in alertness or mental state may mean the coverings of the brain are involved. These symptoms should be evaluated right away.