CareCure Forumshttp://sci.rutgers.edu/forum/
Welcome to the CareCure Community. Our forums provide the latest information on spinal cord injury and related conditions.enSat, 25 May 2019 15:03:02 GMTvBulletin60http://sci.rutgers.edu/forum/images/misc/rss.pngCareCure Forumshttp://sci.rutgers.edu/forum/
Has anyone ever used Biofilm Defense or Interfase Plus ??http://sci.rutgers.edu/forum/showthread.php?264635-Has-anyone-ever-used-Biofilm-Defense-or-Interfase-Plus&goto=newpost
Sat, 25 May 2019 02:04:56 GMTI am a C4 quadriplegic injured 33 years with a long history of resistant Pseudomonas infections. I've done absolutely everything, and still struggling. Recently read about these two products dissolving the biofilm of Pseudomonas. Wondering if anyone had tried it. Thanks
]]>Careshamrock88http://sci.rutgers.edu/forum/showthread.php?264635-Has-anyone-ever-used-Biofilm-Defense-or-Interfase-PlusStrange but truehttp://sci.rutgers.edu/forum/showthread.php?264634-Strange-but-true&goto=newpost
Sat, 25 May 2019 00:48:06 GMTMy wife recently had a 30 day admission to a rehab facility after a hospital stay of 9 days. The care was wonderful, an ot even came to our home where my wife ( transported in our van did transfers to bed, toilet, shower chair etc.) to show readiness for discharge..After discharge we had in home pt...My wife recently had a 30 day admission to a rehab facility after a hospital stay of 9 days. The care was wonderful, an ot even came to our home where my wife ( transported in our van did transfers to bed, toilet, shower chair etc.) to show readiness for discharge..After discharge we had in home pt and ot and nurse for about 3 weeks to assure my wife could do all adl activities independently.

OK, all this was way better than expected but I visited everyday while my wife was a patient and the remote starts on our 2 full sized Ford vans would not work when parked close to the facility. Usually we never use our lifts without 1st starting the vans. The lifts seem slow and close to failure unless the engines are running. Any opinions as to why this was happening? The remote starts worked as soon as I went home or anywhere else.
]]>Lifeancientgimphttp://sci.rutgers.edu/forum/showthread.php?264634-Strange-but-trueNon-Invasive Activation Of Cervical Spinal Networks After Severe Paralysishttp://sci.rutgers.edu/forum/showthread.php?264633-Non-Invasive-Activation-Of-Cervical-Spinal-Networks-After-Severe-Paralysis&goto=newpost
Fri, 24 May 2019 22:58:20 GMThttps://drive.google.com/file/d/1KuH...ocznZ3CRlZQs8Q

I don't think this has already been posted
]]>Curelunasicc42http://sci.rutgers.edu/forum/showthread.php?264633-Non-Invasive-Activation-Of-Cervical-Spinal-Networks-After-Severe-ParalysisE350 XLT Super Duty Van - Single user / driver with lots of upgradeshttp://sci.rutgers.edu/forum/showthread.php?264632-E350-XLT-Super-Duty-Van-Single-user-driver-with-lots-of-upgrades&goto=newpost
Fri, 24 May 2019 18:16:54 GMTIf you looking for the most convenient and comfortable transportation for you or a family member with a wheelchair. This Ford E-Series 350 is filled with modern safety, convenience features, and upgrades that will make travel much, much easier! *Single Driver / User E-350 XLT Super Duty - 2012 *Low...If you looking for the most convenient and comfortable transportation for you or a family member with a wheelchair. This Ford E-Series 350 is filled with modern safety, convenience features, and upgrades that will make travel much, much easier! *Single Driver / User E-350 XLT Super Duty - 2012 *Low Miles = 40K *Flex Fuel capable *Ford's AdvanceTrac RSC traction and stability control system is a definite plus, AdvanceTrac? with RSC? is Ford?s premium electronic stability system that improves vehicle control and stability on all driving surfaces, including snow, ice, gravel, rain-covered roads, and dry pavement. *Self Ratcheting Tie Down system for easy and convenient security of heavy duty wheelchairs No need to pull and tug on the tie downs. It does it on its own. *InterMotive = Intelligent Lift Interlock System *Single Hand controls for Door Opening and Lift System *Custom Front Seat with Slide and Swivel Controls for easy access to Wheelchair and Rear Van access. *Wifi installed and included. Connect with your preferred service provider. *Custom installed Front and Rear additional Super Bright LED light bars for outstanding exterior lighting. *Factory Class 3 towing package *Custom built tool and organizing system to secure your many extras *Ford OEM Rear Bench seat included. Kelly Blue Book gives this Van 4.5 stars! We can coordinate delivery with you! Van needs a new home. Ask any and All questions!website states pictures are too big to upload. I can send directly
]]>JMo77http://sci.rutgers.edu/forum/showthread.php?264632-E350-XLT-Super-Duty-Van-Single-user-driver-with-lots-of-upgradesRT300 FES bike for salehttp://sci.rutgers.edu/forum/showthread.php?264631-RT300-FES-bike-for-sale&goto=newpost
Fri, 24 May 2019 13:45:50 GMTI am selling my restorative therapies RT 300 FES bike. It was purchased in 2017 and has only has a few dozen rides on it, most of which was within the first few months of purchase. It's 12-channels and in excellent condition. I am selling because my rehab aide moved and I can't put the pads on myself so it's just sitting here. The pictures attached are not me but do show you the pad setup.

The bike is in Massachusetts (free local pickup) or I'll ship anywhere if the buyer pays. Paid $22,000 brand new. Price is $12,000. Email me at memoran1@comcast.net

Attached Images

]]>Michael28http://sci.rutgers.edu/forum/showthread.php?264631-RT300-FES-bike-for-salehttp://sci.rutgers.edu/forum/showthread.php?264630-It-s-that-time-again!-NSM-vs-Numotion-for-new-wheelchair&goto=newpost
Fri, 24 May 2019 04:00:10 GMTHello all. It basically comes down to

National Seating and Mobility

-OR-

Numotion.

It's for a new chair and my O.T. basically told me to choose who I want to purchase the wheelchair through as they deal with both. I have had NSM when I was with Kaiser. They were pretty atrocious. I have a feeling Numotion may be equally atrocious, but I'd like to hear what you all have to say. I'm in the Bay Area, in CA, by the way.

Any opinions/stories are very much appreciated!!
]]>EquipmentTufelhundenhttp://sci.rutgers.edu/forum/showthread.php?264630-It-s-that-time-again!-NSM-vs-Numotion-for-new-wheelchairBounder Plus with Off Road Packagehttp://sci.rutgers.edu/forum/showthread.php?264629-Bounder-Plus-with-Off-Road-Package&goto=newpost
Fri, 24 May 2019 00:55:16 GMTI just don't get enough use out of this chair to justify owning it. Needs to find a new home...any one interested at $2,000...you pay to ship it or figure a way to pick it up locally. Western Pennsylvania. It's about 5 years old. Has the high torque motors with knobby ATV style drive tires, along with oversized casters. If you're interested I can send pics via email. I tried to attach a pic on here but it says the file is too large.
]]>tarantellahttp://sci.rutgers.edu/forum/showthread.php?264629-Bounder-Plus-with-Off-Road-PackageSpasm intensity increased, why?http://sci.rutgers.edu/forum/showthread.php?264627-Spasm-intensity-increased-why&goto=newpost
Thu, 23 May 2019 14:56:32 GMTI have a C5/6 SCI since 1981. Up until approximately 1 year ago, I managed my spasms with Baclofen, 120 mg/day. I experienced some medical issues, elbow surgery & a pressure sore that caused me to start using a power w/c and spend the better part of 3 months in the bed. Prior to these medical issues I used a manual wheelchair & was working 50+ hours/week. During this time of limited activity the intensity of spasms increased greatly; to the point that I can hardly sleep and sitting up in a wheelchair is dangerous at times. It seems my spasms are worse in the power w/c than my manual w/c.
I had a few months of relief when I started taking Gabpentin along with Baclofen. The Gabapentin has ceased to help. I was taking 2700 mg/day. I tried Botox- total waste of time & $.
I have tried numerous other meds- Flexeril, Diazepam, Zanaflex, etc with little to no relief.
The neurologist is indicating a baclofen pump may be necessary but I am reluctant.
Why did the spasms intensity spike up so suddenly? After 25+ years of full time employment I resigned from my job and now I am at home constantly fighting these spasms.
Before anyone asks, I do not have access to medical/recreational cannabis in my state. I do get temporary relief when I partake.
Any other ideas other than a move to FL?
]]>Care1981quadhttp://sci.rutgers.edu/forum/showthread.php?264627-Spasm-intensity-increased-whyThe Pork Dishhttp://sci.rutgers.edu/forum/showthread.php?264626-The-Pork-Dish&goto=newpost
Thu, 23 May 2019 07:45:41 GMTI had to type this up for a friend and figured it costs nothing to share it here, as well. It's tasty, relatively low in calories, and reasonably "healthy". Plus, not too hard to make (and get it RIGHT!).

We have this meal EVERY Sunday. For at least the past 10 years -- likely longer! (we arrange our joint schedules to ensure that we CAN do so!)

Suggested brand names are highly recommended as we've tried countless substitutes, over the years, and have been disappointed whenever we've strayed from these recommendations -- particularly the Hoisin sauce and bamboo strips!

Of course, pay attention to T/t!

Marinade:

1T soy sauce (Kikkoman)

1T dry sherry (Tio Pepe -- but not that critical)

1t sesame oil (Kadoya)

1T corn starch

Sauce:

3T Hoisin sauce (Dynasty)

1T dry sherry (Tio Pepe)

1T soy sauce (Kikkoman)

[This used to also include 2T of honey but we found it too sweet]

Ingredients:

~10oz pork tenderloin (Swift Premium)

9.5oz bamboo strips (Aroy-D, this is half of a 19oz can; STRIPS, not SLICES)

Serve over a bed of your favorite rice (steamed or fried). Garnish with scallion slices.

As we make this so regularly, we purchase the tenderloins in ~5 pound packages (Costco) -- four tenderloins per vacuum-packed package. We clean/trim them and cut them into ~10 oz pieces; wrap in Saran wrap ("cling wrap") and freeze. The night prior to serving, we remove one piece from the freezer at ~1AM and transfer it to the refrigerator. It has then thawed just enough to make cutting easy by ~8AM (if thawed completely, it's a little harder to cut finely as its soft and squishy). Marinated, this is then ready to cook just before noon.

The entire meal is about 550 Calories (split between us) and costs about $5 (~$3.50/lb pork; $2.50 hoisin makes 2 meals; $1.60 bamboo makes 2 meals; $0.50 scallions) -- not counting the rice. It feeds two of us (I eat the lion's share of the meat -- but no rice; she opts for the rice, and less meat).

Attached Images

]]>Foodautomationhttp://sci.rutgers.edu/forum/showthread.php?264626-The-Pork-DishA friend in need and in painhttp://sci.rutgers.edu/forum/showthread.php?264624-A-friend-in-need-and-in-pain&goto=newpost
Thu, 23 May 2019 02:50:57 GMTWe have a friend whose mother was recently diagnosed with pancreatic cancer at about 84 years old. She died on Friday, May 17. At the same time the brother of this same friend is suffering through the final stages of ALS, as he is on a feeding tube. What can you possibly say or do to console a...We have a friend whose mother was recently diagnosed with pancreatic cancer at about 84 years old. She died on Friday, May 17. At the same time the brother of this same friend is suffering through the final stages of ALS, as he is on a feeding tube. What can you possibly say or do to console a friend going through this kind of pain. It is just so sad.
]]>Lifegjnlhttp://sci.rutgers.edu/forum/showthread.php?264624-A-friend-in-need-and-in-painObservation as a quadriplegic...http://sci.rutgers.edu/forum/showthread.php?264623-Observation-as-a-quadriplegic&goto=newpost
Thu, 23 May 2019 02:39:13 GMTI''ve noticed that the one thing that I do most, aside from breathing and my heart beating, is waiting.

I was never a patient person before my injury and didn't need to be, but now (except for using my computer, tv, and music) I sit/lie here and wait for things to get done. I ask my caregiver(s) to grab something from the kitchen and I wait for them to put their phone down before they do. I FUCKING DESPISE cellphones.

When I ask my folks for my pills, I wait upwards of a half hour to get them. etcetera etcetera etcetera.

If I had a dollar for every minute that I've sit waiting for someone to do something, I'd be rich enough to hire workers that instantly attend to my wishes without wasting a second.

Anyhow, vent over!
]]>LifeScott C4/5http://sci.rutgers.edu/forum/showthread.php?264623-Observation-as-a-quadriplegicMelio Leg Bag Systemhttp://sci.rutgers.edu/forum/showthread.php?264622-Melio-Leg-Bag-System&goto=newpost
Thu, 23 May 2019 02:14:50 GMTHas anyone used this system? We are looking at it for my son.Has anyone used this system? We are looking at it for my son.
]]>Equipmentdee1843http://sci.rutgers.edu/forum/showthread.php?264622-Melio-Leg-Bag-SystemFull-time aideshttp://sci.rutgers.edu/forum/showthread.php?264621-Full-time-aides&goto=newpost
Wed, 22 May 2019 20:41:39 GMTHow many people are using full-time aides. I'm considering making the switch from living with family and using part-time staff to living alone. I could continue to use part-time and just increase the hours or I could hire fewer people, full-time. In either case, I would have to hire new people because I would also be moving, so retention of my current people is not an option. Curious to hear from people about their experiences with full-time aides. Are you paying them salary or still paying hourly? Are you paying for any additional benefits?
Thanks
]]>Caregivingwchairhttp://sci.rutgers.edu/forum/showthread.php?264621-Full-time-aidesADAPT action in Washington DC - 80 arrestedhttp://sci.rutgers.edu/forum/showthread.php?264620-ADAPT-action-in-Washington-DC-80-arrested&goto=newpost
Wed, 22 May 2019 19:07:15 GMTADAPT, the disability rights organization, led an action in Washington, DC yesterday. I saw no word of it in the primary news feeds. 80 people were arrested and charged with "crowding, obstructing or incommoding". I never heard of such an offense, but if any town would feel the need for a 'crime' of that wording, it is Washington. They sought to promote the Disability Integration Act.

From Disability Scoop:

"Dozens of disability rights activists ? including some in wheelchairs ? were arrested near Capitol Hill while pressing for more access to community-based services. U.S. Capitol Police arrested 80 people who were demonstrating Monday morning outside the headquarters of the U.S. Department of Health and Human Services.

The protesters were with the disability rights group ADAPT. They were seeking a meeting with Secretary of Health and Human Services Alex Azar to ask that he support adequate funding for Medicaid, discontinue efforts to block grant the program and back a series of other changes to make services for people with disabilities more available in the community.

?We need to address our current inability to effectively transition people out of nursing facilities and support them in the community,? said Rhoda Gibson, an organizer with an ADAPT chapter in Massachusetts. ?Creating models for more effective transition would involve multiple changes in how these services are authorized and provided.?

All of those arrested were charged with crowding, obstructing or incommoding, according to Eva Malecki with the U.S. Capitol Police. They were all released and can either pay a fine or request a court date for the misdemeanor charge, Malecki said.

Separately on Monday, ADAPT activists also occupied the offices of 19 members of the House of Representatives. The group sought to drum up support for the Disability Integration Act, a bill that would ensure that people with disabilities who are eligible for institutional care would also have the right to access those same services in their own homes if they prefer.

As a result of the action, some lawmakers did indicate that they would sign on as co-sponsors of the legislation, ADAPT said."

While I strongly support the need to reduce our national budget, many of the proposals in the Disability Integration Act will end up being cost neutral or close to that. Providing services to disabled people in their homes, or helping them move out of nursing homes, often means our more severely limited mates are not forced into nursing homes, which costs the government a bundle and where care is often lousy. For almost 20 years now federal regulations (medicare regs and coding) have been forcing wheelchair users who could have remained at home with their families into nursing facilities. That ends up making those disabled people and their families miserable, and costs the government more money but it comes from a different budget so one office can claim "cost reductions!" while another moans about the increase in numbers of Medicaid patients in nursing homes. ADAPT goes and speaks to Congresspeople, often cluing them in for the first time. Great organization.
]]>Tetracyclonehttp://sci.rutgers.edu/forum/showthread.php?264620-ADAPT-action-in-Washington-DC-80-arrestedSurelock Brakeshttp://sci.rutgers.edu/forum/showthread.php?264619-Surelock-Brakes&goto=newpost
Tue, 21 May 2019 19:13:21 GMTLock & Roll