It . It depends on what you were told to live with.
But yes, medicine cannot fix everything and sometimes the cure is worse than the disease.
These cases are tough for doctors- most of us got into this work to try to help people, but not all diseases are cureable or even treatable. Sorry that you are in a situation like that.

Understanding. When your doc does not have the cure or answer to your set of symptoms it is frustrating for both your doc and for you. Hopefully your doc can provide education, reassure you of what you don't have on the list of differential diagnosis, and offer referrals or second opinions. Okay to seek 2nd opinion and education. Healthtap is a good first step.