Posts: 14

Topic: Clean Scan

Hello all,

My wife, Marina, had a full body CT scan last Thursday. Our oncology nurse called us today with great news. The scan was CLEAN!! No evidence of recurrence.

The nurse gave us a heads up: our oncologist will offer us another chemo cycle. Gemcitabine/Cisplatin cycle #6. The nurse said he likes to add a cycle or two *after* a clean scan. We will see him tomorrow (Thursday) to discuss this. I'm not sure yet what we are going to do.

I also want to mention that we reached a milestone. Tuesday marked the one year since Marina's CC symptoms showed up. April 10th, 2011 she came down with severe abdominal pain. We thought she caught a bad case of food poisoning at a friend's dinner party (little did we know).

So there you go. A clean scan at the one year mark. I hope Marina's good news give hope to others!

Re: Clean Scan

Hi,Eli,Indeed ,it is good news. I was worry that I did not see you participated on the message board lately and emailed to your direct email address,but the email returned. Is your email address listed correctly, can you check?When you have time, I need your computer expertise and skill to help me to correct and post some up- to- date information on the Wikipedia under "cholangiocarcinoma " .take a look about the version history there and see what you can correct what I did wrong there. They like me to help them to post more current info but I had a hard time understand the computer entry requirement.The information on Wikipedia is at least six years behind and the reason I got involved is one of our member Malc1235? Said on this message board how horrify he felt when he first read about this disease on Wikipedia .God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Clean Scan

This is great news, thanks so much for telling us about it!!! You and Marina must be so happy, rightly so!!! Congratulations, and what a way to mark the 1st year since Marina got her first symptoms.

Hugs to you both,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Clean Scan

I am so happy for you and Marina. That is the best news ever!! I hope you continue to share your knowledge with us on this site. You are a real asset.May you have a bright and happy future. Take care.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Clean Scan

Hi, Kate,You are welcome.Eli is excellent in computer ,he is an IT guy and he is very detail oriented in researching of information. His style is subjectively objective. He is a good assetfor this site. He told me he is working on the matter ,so please tell you dad we pay attention to our members including things that seems of no importance.I try to edit the language of Wikipedia totally because I agree with your dad's comment; and the info they put up there was way too old and out dated.God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Clean Scan

Thank you all for the warm congratulations.Marina and I are very thankful for your support.Hugs to all,Eli

P.S. I will work with Percy to see what we can do about Wikipedia language. Changing Wikipedia articles isn't as simple as I thought. Each Wikipedia article has a small community of editors behind it. They are very protective of their work. Understandably so... they put a lot of effort into creating that content.

The information expressed is not medical advice. The discussion boards are not intended to replace the services of a trained health professional or to be a substitute for the medical advice of physicians or other healthcare providers. Read the full disclaimer.