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Welcome to Hello haemophilia!

An online community creating positive change in haemophilia

A Platform With A Purpose

Haemophilia can feel isolating and overwhelming...but it doesn't have to. Whether you're living with haemophilia, providing care for someone who is, or know someone facing the same challenges, this community is here to support you.

We believe that by listening to each other, collaborating and sharing unique perspectives, we can shape a better future for lives affected by haemophilia - together.

Vote for the issue you believe the community should address:

Choices

Greater responsibility on the part of teens and children for their condition

New tools and digital initiatives to improve treatment options

Greater access to physiotherapists specialising in haemophilia

Increased and improved usage of ultrasound in haemophilia treatment

This community will help you…

Speak up...

Polls, surveys and quizzes help us all to better understand the challenges you face.

Stay informed...

Our community offers information on many important aspects of haemophilia, from education to events happening around the world.

Solve problems...

Hear about the ideas and projects being developed by the community to help overcome the challenges posed by life with haemophilia.

Join us on Facebook

Come say hello today and join a community for positive change in haemophilia.

This is your chance to connect with people who share your journey and never miss an update from our ever-evolving community.