What happens when you ask families how the NDSC and our annual convention has impacted their lives? You get answers like these, from some super awesome families.

The Fullers
When Cathy looks back on the years, she reflects warmly on the support NDSC has provided along the way. “I called many times with questions, especially as a young mother. They always make you feel like you are the only one and that they know you. We love it!”

The BergeronsFor Peggy and her husband, being a part of the NDSC family has been invaluable. “With NDSC, there are always answers for the next stage of our journey with Carrie.” Additionally, it’s evident to see how Carrie has blossomed through her relationship with NDSC as well.

We’ve published two Growing Up NDSC stories on our blog so far, and have three more to share. You can keep up with them (as well as other interesting news — like movie reviews by our resident film expert) on our blog right here.

Advocacy Works!

Along with our partners at Special Olympics, Best Buddies, The Arc and others, we’ve been keeping you informed about comedian Gary Owen and his incredibly offensive routine which has been airing on Showtime. After several weeks of hard work by a wonderful coalition of disability advocates, four self-advocates met in person with Mr. Owen to explain our cause for concern. The meeting was extremely productive and a great healing opportunity for the community.

Here is a statement released by the self-advocates after the meeting:

“Today Julie Petty (Bentonville, Arkansas), Loretta Claiborne (York, Pennsylvania), Ricardo Thornton (Washington, D.C.) and Frank Stephens (Fairfax, Virginia), representing a broad coalition of disability advocates, met with Gary Owen, a comedian and entertainer. The meeting was arranged for both sides to listen and hear one another’s perspectives about a segment on Mr. Owen’s comedy special on Showtime.

Prior to the meeting, Mr. Owen decided to remove the segment in his Showtime special in which he depicts people with intellectual disabilities. Effective immediately, the special will still be available On Demand but will not include this portion.

The meeting was educational, positive and productive. The outcomes from the meeting were significant. Mr. Owen made positive commitments regarding use of the “R word” in his comedy routine.

The coalition has agreed to end its advocacy efforts in this situation. The coalition, through the voices of self-advocates Julie Petty, Loretta Claiborne, Ricardo Thornton and Frank Stephens, express our appreciation to Mr. Owen for listening and acting positively to further understanding and healing.”

We are proud to collaborate with such a strong group of disability advocates!

Travel Tips from TSA

With the long lines and wait times at security checkpoints in most airports, it can be even more difficult to navigate when you have a disability or you are traveling with a child with a disability.

The TSA has some support options, including toll-free number to call with concerns (72-hours in advance) – TSA Cares, 855-787-2227 – and a disability notification card, that you can downloadhere. You can also visit their website for more comprehensive travel tips.

Convention Registration Closes in Two Weeks

In just two weeks, advance registration will close for our Orlando Convention. This means after June 30th, the only way you and your family will be able to attend is if you walk up and register on-site. And that’s if space is available! Please, make your plans now and register before June 30. You’ll be assured a space in the convention and you’ll save money (fees go up on-site)!

1. The General Convention, Thursday, July 21st to 24th
This is what most people think of when they think about the NDSC Convention. Plenary Sessions, Sharing Sessions, more than 80 workshops, dances, exhibit hall, workshop recordings – these are all included in your General Convention Registration. http://www.ndsccenter.org/the-convention/

2. Global Down Syndrome Foundation’s Research and Medical Care Roundtable, Thursday, July 21st from 1:00pm to 5:00pm
A free benefit for registered NDSC convention attendees, this seminar features renowned scientists and medical professionals. Topics include Down syndrome and cancer, autoimmune disease, and Alzheimer’s disease. Lunch and a gift bag are included. Seating is limited. Pre-registration is required. http://www.ndsccenter.org/the-convention/gdsf-roundtable-registration-form/

3. Pre-Conference Sessions, Friday, July 22nd from 8:00am to 12:30pm
You choose one of nine different sessions, and spend 4 hours on that topic. Employment, Education, Transition, Speech, Co-occurring Diagnoses, Behavior, Adult Siblings and More! See all the topics and details here: http://www.ndsccenter.org/pre-conference-sessions/

4. Educator Conference, Friday July 22nd from 8:00 am to 3:15pmEffective Practice for Students with Down syndrome: Tools for Today’s Classroom
Bringing together world-renowned speakers for a special workshop for educators working to enhance outcomes for their students with Down syndrome and other intellectual disabilities, as well as autism. CEU credits are available for this session. http://www.ndsccenter.org/education-session/

Registration deadline is June 30!

Updated Down Syndrome BrochureWe are so excited to show you our updated NDSC Down syndrome information brochure! Designed to be a brief overview of Down syndrome, this brochure is perfect for those who have just received a diagnosis or people looking to learn basic information about Down syndrome.

Parent Organization Affiliates, you can order these at no charge to include with your new parent information! Contact Tamara to get your copies today: 770-604-9500; tamara@ndsccenter.org