My life on a plate! A place where I get to waffle on about anything and everything, and hopefully raise some awareness about Cystic Fibrosis and organ donation on the way.

Thursday, December 06, 2007

Harefield today – my first clinic appointment in 3 months! The weather was pretty atrocious this morning meaning the roads were just as bad, and I drove past two pretty horrible accidents (I am not very grown up and it makes me very sad when I drive past these things). Got there late (doh) so straight in for bloods. Clearly I hadn’t drunk enough this morning as even after 3 attempts by one of my fave phlebotomists who usually has no problems with me, I was pretty damn stingey.

I knew I had a busy day ahead as I had several things on my agenda; Christmas cards to deliver to each ward, a huge tin of biscuits to wave at any passing staff, and of course wedding photos to show off left right and centre! Oli and another person I know are inpatients so I wandered off to wave to them as well. Oli is looking fantastic (although if he’s anything like me he will want to pelt people with anything in reach who keep saying that to him) and it was so lovely to see all the staff again on various wards. There was much cooing and admiring of photos and chatting excitedly about the honeymoon which is on Saturday!

I may not have blogged about this…we weren’t going to go on honeymoon as A had used up all his leave from work (and more). Well I guess technically I’d used it all up for him, but either way it wasn’t looking likely until his lovely company decided their present to us both would be to send us to Budapest for 4 days to experience the gorgeous city and famous markets, hopefully including some lovely Christmas ones. I am really rather over excited about it all. How sweet are some people in this world…

Anyway back to today; X-ray was fine, lung func up quite significantly which they were all delighted by as I am nearly 1 year post and it’s still moving upwards, yay! The only thing that was a tad amiss is my creatine levels seem to be playing around a little bit. I really know very little about kidney stuff (in fact what I do know you could probably write on a postage stamp) but I do know that we don’t want jumpy creatine levels as it is some sort of indicator of kidney function. Or something. Anyway it’s the first dodgy result like that I’ve had since discharge so it will be followed up once we get back from honeymoon. I’d rather appreciate it if my kidneys fell into line and didn’t get too over excited like that again resulting in much more normal blood test results.

All in all a good day. And am clear to fly off on Saturday – eep! (never been the keenest of flyers). Will be back and posting with pics some time next week.

I'm sure your kidneys want attention Em, if you need to know anything you know where i am. i feel quite important now cos i know about kidney's!!Have a wonderful time in Budapest and enjoy that freedomlots of hugsAllyxxxxxxxxxxxxxxxxxxxxxxxxxxxx

lets hope all settles down when you get back bloods creatanine etc can be tempormental with immuno meds kidenys etc. Know Rachs was up & down like yo yo for first few months especially.'Almsot expected' as such so try not to worry too much ;)

About Me

29 years old, small blonde and smiley. I love life, but was facing a death sentence due to end stage cystic fibrosis. Thanks to the generosity of a stranger I received a life-saving double lung transplant in January 2007, and am now a very proud mummy.
I am very much a people person and a rather girly girl, loving all things pink! I enjoy talking, laughing, utilising my love of talking in the form of public speaking and awareness raising, and inventing new words and then being unable to separate them from real ones in my head.