Blog Archive

We are a family of 5 learning how to navigate the world of child with chronic health issues. Our youngest daughter Marley was diagnosed with Rhizomelic Chondrodysplasia Punctata or RCDP when she was 2 months old. Since then we have been through multiple surgeries and hundreds of dr's appts. She was given a very grim prognosis but has astounded everyone by her amazing progress. We are so blessed by her presence in our life and are excited to see what the future holds for her.