Physical therapy has really helped my daughter with pain. Since Lyme pain can travel, the dr wrote which areas to concentrate on and added "and other areas as needed". We also have a portable TENS unit that helps the pain too.

I have pain lower than what you described, in fact it's my derriere. Nothing is helping today. What do you take for pain? I have no Rx for pain meds, but I am seriously considering asking for something. This is for the birds. Does aspirin or ibuprofen help you at all?

I also have pain and discomfort in the butt area, it feels like I am sitting on a golf ball. I have a 4cm Tarlov cyst. I do take an inflammatory called Arthotec and it does help with back pain but does not alleviate it. When I can not take it anymore, I will take Tramadol. Both are prescribed. I also will use a heating pad just about everyday.

I have pain in my butt, and lower back as well. Actually, it shifts from lower spine, to lower left, and both cheeks. I've read that Lyme likes to attack the collagen in muscles, and I think this is a great place for Lyme to hide out. Your back and butt muscles are some of the hardest muscles to really keep strong, which combined with Lyme results in less oxygen supplied to them. If you have any energy try to do some lower back stretches, squats, stomach leg lifts, or any other exercise to really focus on those muscles. I also sleep on a heating pad at night which feels nice, and also raises my core temperature. During the day I sit with my back to a massage pad, which also keeps my back muscles active.

I have mid back pain but more to the side by flank. Have large kidney cyst on that side which they say "shouldn't" cause pain. I am confused as to whether kidney, back or muscle pain but sometimes it is excruciating, like last night, and sometimes not there at all. Bizarro.

My doctors used to tell me that my fibroids and ovarian cysts weren't big enough to hurt but every month I was in excruciating pain. In my opinion, if it's not supposed to be in your body, it definitely can cause pain.**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

I had really bad back pain twice. It was not related to my spine or kidneys or anything else internal but I could literally not move. I used a lot of pain relief gel and a heating pad. Each time it lasted about a month. I had to take heavy duty pain relief to get any sleep. I feel for you!!! A hot bath helps too.

First of all, I have pronounced scoliosis, so the severe back pain I have endured for most of my adut life, I have attributed to my scoliosis (inherited) Now I can look at my back thru a mirror and I can clearly see why I would be having pain-- my spine curves quite remarkably from shoulder blades, and the curve between my lower back and end of the spine (right at my tailbone) is very pronounced.

I accepted back pain at an early age (19), and I do believe that the pain I've had for the past 35 yrs has been due to scoliosis, even tho it is said that scoliosis does not cause pain.

But, I am responding here to tell you that the severe, lower back pain I have suffered from for the past 2 years is DIFFERENT from what I've experienced before. Pain killers do not touch it and occasionally it is crippling and unbearable.

I do see a neurosurgeon for my back and my next appt is in a week. I know that the next step would be injections and that is something that is not good for Lyme. I am trying to figure out if the Lyme is causing the pain or if it is the spondy or bulging discs. That is why I wanted to know how many with Lyme suffer from back pain and attribute the pain to Lyme.

@GotLyme - when I read your post, I was amazed how similar our suffering is. (pain in my butt, and lower back as well that shifts from lower spine, to lower left, and both cheeks). I'm glad that you were able to associate that with Lyme liking to attack the collagen in muscles, so this is a great place for Lyme to hide out. I also had the same idea as you to use a heating pad, especially at night, I can barely move in bed without major pain, so I think that a heating pad will be a big help, raising body temperature, etc. I noticed that since I got sick my body temperature is a few degrees lower than normal, has anyone else notice this?

As to body temperature yes it is lower and I believe a lot of lyme patients experience this symptom which is probably why a lot of us are so cold most of the time. My core temperature has been around 97.3 or 97.5 with a fever being 99. My acupuncturist says to make sure my feet stay warm, so I keep a heating pad on them when I can. I too have the butt pain, but it is off and on and not as bad as you all describe much like a charly horse.Late Lyme, few tick bites. Treatment started July 2011, Doxy 9 days, Amoxcillian a month, cipro/zithromax 3 mnths, Mepron/zithromax now Doxy and Mepron, Vit D, B 12, Vit C, garlic and Artemenisin. . Muscle spasms, brain fog, heart palpitations. Taking cortisol for low adrenal function. Hypothyroidism.