Alzheimer's blog

Alzheimer's: Welcome to our new blog

Welcome to our new blog from the Alzheimer's Center at MayoClinic.com. I am excited and encouraged about the possibilities we can create by this endeavor.

For many years at the Mayo Clinic's Alzheimer's Disease Research Center, I have been fortunate to facilitate groups for persons in the early stages of a dementia, as well as groups for their care partners.

Most often these care partners are husbands and wives, daughters, daughters-in-law, and sometimes sons, grandchildren and friends. Through this experience, I have discovered that the statement "about 5 million people are affected by Alzheimer's" is, in part, a myth. In truth, 5 million people may have the disease, but millions more are affected through the gradual loss of their spouse, partner, friend, confidant, and loved one.

Dementia, devastatingly, is a disorder that isolates those affected (both the person with the disease and their care partner). But in the modern world of MySpace, Facebook and other blogs, there is a new way to make connections, to reach out, to share common experiences such as grief, humor, despair, and hope. My belief is that this new blog can serve to bind us together on the shared journey we call Alzheimer's disease or other dementia. I invite you to share some part of your story and hear from others that you are not alone.

There's a new and interesting historical read out there regarding the possible etiology of Alzheimer's. You can find it at http://tinyurl.com/jjfo2yr

Dr. Joel Binder

August 29, 2016 10:53 a.m.

I would like to subscribe to the Altzheimer's blog.
john miller MD
2610 old orchard rd
lancaster, PA 17601
Mayo 1969 otolaryngology
jwm18@comcast.net

John W. Miller, Jr. MD

August 14, 2016 12:09 p.m.

how do I get this blog sent to my email??

Mary Rainboth

August 4, 2016 10:57 p.m.

My husband has Alzheimer's and is hospitalized for kidney problems (stage three). He has been put on Zyprexia to help with his aggressive behavior since he was hospitalized. He throws his walker at the aides and gets very loud and combative most nights. I don't think the Zyprexia is helping much, and he sleeps all day. and is up all night. What can I do to get him over these aggressive spells, and back on sleeping at night again. I want to bring him home again, but I can't take care of him like this. I am 72 and could not help him if he fell. The Doctor also prescribed zanax for sleep, but he sleeps way too much. Please Help!! Bonnie O.

Bonnie Overfield

July 27, 2016 9:34 p.m.

My. Husband has had AD for at least 3 yrs. This last yr he had 2 major operations which has made his memory worse. He's still independent in most areas but of courses he doeusn't drive anymore. I'm very positive with him about his memory loss and try to make him feel as though his memory loss happens to a lot of older people as they age. He's 80. I haven't actually discussed the disease with him. Any suggestions would be appreciated.

Sara Dunlap

April 1, 2016 9:58 a.m.

My husband was diagnosed 6 and a half years ago, and until a year and a half ago he was at home. I was afraid he could fall on the stairs or trip on carpets (we rolled them away). What frightened us (one of my daughters lives with me) was when he started asking to go to his parents' home and started to try to go out alone. Gradually we came to realize how dangerous it was becoming to keep him at home. We decided that it would be more prudent to place him in a home, where there is special care for Alzheimer patients.
I can say that it was the most difficult decision of my whole life, but I saw there was no other solution. I visit him every day and sit with him and chat with him for about 2and a half hours. But, communication has become so difficult -- he has forgotten so many words! I play the music he loved before -- opera arias that I have in my iPhone or iPad. He enjoys this very much and helps. The Home provides gym, music playing with the group of patients, etc. Lately, my husband is tired and wants to sleep during the morning and often misses these activities.

Dr. Sonia Mucznik

November 28, 2015 8:56 p.m.

My mother has had Alzheimer's for about 7yrs now and has gotten increasingly worried, frightened, and angry.
She has moments when she is inconsolable. She walks around and does not see her surroundings but what seems like an alternate universe. I'm at. A loss as to how to comfort her. Once she starts on this path it can last for hours continuously repeating the same phrase or actions. Any suggestions how to deal with this in a companionate way?

Debora

November 18, 2015 4:16 p.m.

My mother has had Alzheimer's for about 7 years. She has become very mean and nasty, cursing, talking about sex,and just saying very inappropriate things. I have grandchildren that I don't want to hear these things. How long can I expect this stage to last? At this point in not even sure I'm doing the right thing.......

vivian

November 17, 2015 6:07 p.m.

I just heard about a decrease in smell is one symptom . I haven't been able to smell much for years and I am worried now. I have 100% faith in the doctors at Mayo. What should I do?

Judy ganske

November 15, 2015 12:11 p.m.

My step father has demencia, he sold everything he owned an left it in the house. My mother's paintings, photos, everything. The showed up at his sisters an said, I'm moving in. Then " I knew what was going to happen. That 10yr. Marine Sargent was mean. Mom wouldn't have approved of him after she passed on, that he took me n my sis, out of the will. His sister put him in a nursing home, but now under lock down. How can I get the money that my sister and I truly deserve

Lora Cooper

August 29, 2015 7:47 p.m.

My Mom started talking in a foreign language she knew as a child. Is anyone else experiencing this? It's not all of the time but she will switch out English words for the foreign word.

Carol

April 18, 2015 1:03 p.m.

When people heard my husband has Alzheimer's they either stopped calling or they were chuckling with glea that we (my hubby and I) were going thru this. To my knowledge we never did anything to hurt anyone but did try to help our family. Did other people have the same reaction?

gvm

March 1, 2015 10:42 p.m.

My Mother is in a special nursing facility with dementia & I have been on long term pain medicine, and now have diabetes with memory loss & confusion. Now I get lonely & so confused (I need help with my meds) because I forget what or how many I took & now my eyesight has gotten so bad my magnifier doesn't help. My wife gives me the shots I need & gets my pills out, and I lose my way in the house (I can't walk) and don't like to leave my bedroom..Is it time to seek help?

grampajim

December 9, 2014 8:00 a.m.

Can magnesium and calcium alleviate muscle leg and back cramps? How much should one take daily?

alles

September 12, 2014 5:52 a.m.

In many universities we study in to gain an occupation. We may use <a href="http://papersmart.net/personal-statement-help.html">PaperSmart</a> personal statement writing help that would be a reasonable issue for the next couple of decades, i'm sure of it. Our educational system is generally influenced by all fields of social life as well as politics and science. But luckily high-technologies are used to help students learn better.

Mich

May 11, 2014 7:13 a.m.

I AM VERY CONFUSED: I NOW HEAR THAT I CAN FORESTALL MY ALZ. DISEASE BY CHANGING MY EATING HABITS AND AVOIDING CARBS....IT SOUNDS PRETTY DRASTIC . WHAT IS THE MAYO CLINIC OPINION OF THIS 'NEW' DEVELOPMENT? I AM IN THE MILD TO MODERATE STAGE AND TAKE 2 MEDICATIONS FOR MY DISEASE. COULD THIS CARB BOYCOTT (WHICH SOUNDS LIKE THE SUPER PROTEIN DIET) REALLY HELP?? DOES NOT SOUND HEALTHY TO ME.

CAROLE NOVASKY

January 14, 2014 4:36 p.m.

My dad is in stage 2 of his demensia and is now in a home. This disease is very confusing because there are times with my dad I catch myself thinking,"Why is he here in this home?" And then he gets obsessed on something and he is totally outrageous till he gets what he wants. He is one that gets really violent till he gets his way. Then there are times when he seems to be normal, talking, laughing, joking. I think dealing with a lived one with cancer was much easier then this disease. At least their suffering isn't as long as those with demensia.

Sheree

September 5, 2013 6:28 p.m.

I am a third party non-medical caregiver for a good natured 92 year old Alzheimer's client. Formerly a department head at Stanford, he has a &quot;mathematical&quot; mind still. Although he can no longer hear so he chooses not to speak (we write each other notes), he enjoys spending time in his allocated activity area on the kitchen counter. He folds plastic trash sacks in quarters and stacks. He separates playing cards by suit or by type or by color. Separates poker chips by color. I could use some suggestions for some
more counter top activities he can perform by
himself (he likes to feel independent, not &quot;watched&quot;).

Mary

September 1, 2013 4:46 p.m.

I think a professional needs to intervene for my father-in-law who definitely shows signs of Alzheimer's. He has had many car accidents, has been lost twice, hit a cyclist (and did't tell anyone). Cyclist called asking for repairs to the bike. His insurance agent look us up to let us know about 15 car accidents in a little over a year. He had been physically removed from a bank for being disruptive. He thinks they stole $32K also thinks the bank is a company he owns. Latest drama, he kicked rocks at the next door neighbor. They called the cops. My mother-in-law refuses to help him and told us that it was none of our business. My husband and his sister are so afraid of being disinherited they won't do anything. I've called Adult Protective Services and they say he isn't on their radar. Both APS and police say they can't do anything until they have just cause. I'm afraid he's going to drive his car into a store. Is there anything that can be done before something deadly happens?

Dawn

August 13, 2013 4:00 p.m.

I have four brothers and I'M MARRIED BUT STILL FIND IT HARD TO TALK TO ANYONE ABOUT IT AND I'M SO LOST HELP ME PLEASE

Ana

August 13, 2013 3:54 p.m.

SORRY TO BOTHER YOU BUT I'M SO LOST WITH OUT MY MOMMA SHE PAST AWAY A YEAR AGO THIS FEBRUARY FROM DEMEMTIA AND I &lt;3 HER

Ana

June 26, 2013 9:49 a.m.

I am presently reading Lisa R Hirsch's book: My Mom, My Hero where she describes her relationship with her mother, a victim of Alzheimer. It is very inspiring and heartwarming for all of us who are facing a similar challenge.
Her book can be found on Amazon.com.

Lorraine

June 7, 2013 10:57 a.m.

My Dad 90, has dementia. Sometimes he acts completely normal, other times he's completely out of it. He changes day to day, or at times hour to hour. Is this common ?

Veronica

May 29, 2013 11:45 p.m.

Hello out there....I recently read an interesting book called &quot;The Reluctant Converts: The Intersecting Spiritual Journeys of a Missionary, a Housewife, her Gay Son....And a Bunch of Cats. A large part of the memoir is about a son who helps take care of his mother who has is in the final stages of Alzheimer, as well as his mother's 50 year friendship and a priest stationed in the Philippines. The book is insightful, touching and at times surprisingly funny, and very helpful for family members dealing with dementia and Alzheimer. You can buy the book on Amazon.com, search William Strubbe and the book will come up....Really, it is a great read.

JOSHUA

May 24, 2013 8:38 p.m.

Loved doing the HABIT program with you Angela!! I forgot to pick up my Art of Living Yoga tape from you!!!

Denise

May 5, 2013 7:32 a.m.

my husband is in stage 6 of Alz he has began to become verbally aggersive he is taken 10mg.of aricept daily.also on a homone meletonin to help him sleep what can be pescriped for the aggertion.

Ellen

May 4, 2013 6:45 p.m.

to Dawn,yes you are over worked. And this is like early onset Alzheimer disease or Dementia. The biochemicals for the brain cells are changing in a wrong system. And the brain cells will not work. And your fear makes this also.You have only symptoms like Alzheimer disease. So you can not do anything in your life, because your life is like on vacation.Please do all the things slowly and with concentration.What I am thinking I am taking. So you set the target in your life, in your life with fear for this target.And than you have in the end your life in this target. So you have to change your mind, your life out of your family system.You are you as individuel person and your life is your individuel life. I wrote a book, I am a caregiver and a therapist for a long time.

Susanngab

May 2, 2013 1:52 p.m.

My husband has early/moderate alzheimers. He was diagnosed 2 years ago. I retired 1 year ago to care for him. Since I am home every day, he now expects to have sex every day. As you can imagine, I am not the least bit interested. I have tried re-directing, to no avail. Is there something out there that I can give him to decrease his libido? HELP!

Pat

February 28, 2013 9:19 p.m.

At the age of 48, I am beginning to suspect I may have early onset of Alzheimer's. Both my maternal grandmother and two maternal aunts began suffering Alzheimer's in their early 40's. Only my one aunt is alive now, has been diagnosed with plaques in the brain-tanglement. Within the past 3 years, I have been noticing slight changes in myself, but more noticeable over the past year and recent. I have been attributing this to working a lot and stress. However, after driving past my house, driving past an exit I travel all the time and forgetting what time I was supposed to be at work after being told what time only an hour before, I am beginning to fear something is not right. I am in the process of seeking professional help possibly through Thomas Jefferson University Hospital. I revealed to my 28 year old daughter my fears just this evening. My younger children who live at home have already been seeing some symptoms.

Dawn

February 21, 2013 4:23 p.m.

My spouse has dark
My husband has early onset alzhimers and I cared for him for 7 years. Then the hardest part hit me in the face. It made the altzhimers seem tame. The hard part was finding a nursing home that takes Medicaid that is decent, clean
And not overcrowded. I went on tour and it was heartbreaking to even think of my husband having to stay in for any time at all. Our medical programs have dropped the ball when it comes to helping mentally ill or disabled. It was just like the movie snake pit. L
I woulda advocate for better care for the mentally ill and disabled. Tell me how to start. Please.

Kitty

February 6, 2013 11:09 a.m.

I think Drs. Should have more caution prescribing Arricept. They only gave my wife a month to live because she wasn't eating anything or taking her medicine. I brought her home with Hospice and I got her to eating Carmel corn, then she progressed to toast, peanut &amp; jelly, celery w/cream cheese. She is now eating a lot of things but only as finger foods. She had gone down to 97# but is now back up to over a 100 and I think the loss of appetite was due to Arricept.

Bill

December 24, 2012 10:55 a.m.

I have heard that a person with Alzheimer's/dementia often turn on the ones they are closest to and not on the others. Is this true?

Lee Ann

December 19, 2012 3:12 p.m.

My husband was diagnosed with dementia/Alzheimer's 5 years ago, he is 61. The other day I rec'd an article, &quot;What If Grandpa Doesn't Really Have Alzheimer,s?&quot; about a guy that was also diagnosed but was later told he has NPH. (normal pressure hydrocephalus) Siania in Baltimore,MD has information about NPHand will do a second opinion after a number of other testing is done.I was wondering if Mayo could help me with seeing if MAYBE my husband would fall into this catagory. I have taken the article to his neurologist, but she only read a few lines and in so many words said I was wasting my time. We are only 3 hours from Denver CO and have family in Phoenix,AZ. which both would make more sense than Maryland.Thanks for all.

Marcia

November 30, 2012 4:54 a.m.

to Patrice:
the best helpfull thing is, she is doing all the things she can in the daily life. Because the daily life is the training for the brain. When she is doing all cells in her brain are in connection. If we are doing, we get away this. Also the play games. A other thing is, she will play the games. All things she like, no new things. So she will be better. I wrote a book: Rediscover Recover. I am a caregiver for long time.

Susanngab

November 19, 2012 12:47 p.m.

my sister in law was just recently diagnosed with early onset alzheimers.....she is 52....what kind of activities/gifts would be beneficial to her...what are some things that would be helpful...books games etc...

Patrice

October 23, 2012 4:08 p.m.

Researchers at the University of Missouri-St. Louis are looking for women who help care for an older relative with dementia. Interested individuals will be invited to participate in online surveys about caregiving and related health issues. Those who are eligible and participate can entered for a chance to win gift cards. For more information, please email: caregiverpsychology@umsl.edu or go to our website at http://www.umsl.edu/~steffena/index.html

Megan

October 5, 2012 10:19 a.m.

It is distressing to read blogs, especially when people are looking at prescriptions for help in reversing the ravages of Alzheimer's. They have never stopped, reversed or cured anyone.
Drugs are primarily directed at one &quot;cause&quot; and they do that in the face of Thies' (Medical scientific officer of the AD Assoc) stating the cause or causes of AD remain unknown. Stop and ask, How do Alzheimer drugs treat unknown causes. Sort of prepares you for the nonsense that comes from the medical industry.
The basis for the book I wrote is to look at the flashes of memory or moments of lucidity that we all see. Then you should look to find what may cause these positive changes. They come from the body without medical or pharmaceutical interference. These natural events overcome whatever is causing the negative. Why waste your time looking at the negative? The industry has spent 106 years on that course.
This disease is a protein problem, the basis for the solution I believe starts with one amino acid. It worked for us while my mother was under the care of a well known Boston neurologist. It is working for another under care in his department. A woman under a doctors care has left a nursing home by adding one amino acid when it accompanied the doctor making her medically sound. Got rid of UTI, etc.
These are just a few examples
There you have a positive point to start.
Brad

to Peter: Yes you can do anything. Your father have to do all the things in the daily life. But he has to do this with concentration. So he has more input in his brain. And he has to do exercises for concentration. He sit down, and look on the table. And says all the things there are on the table. And now he shuts hes eyes and than he repeats. In the next time he takes a thing, what he like. And describes this. This exercises he has to do in the daily life. So his brain becomes more information, this is the input for his brain. And all cells and associations are going on. This is the best way he and you can do. Please help only, when your father can not do this. When you speak with him, take the older words, not your words. Because in his brain there are the older words with the connections for his braincells. I wrote a book. I am long time a caregiver.

Susanngab

September 3, 2012 1:41 p.m.

Hi All, This is such a depressing subject. Everyone in my mothers side of the family has passed away (Alzheimer's), also my little brother commited suicide. My older brother died of cancer last Aug. but he also was in final stsges of Alzheimer's, he was 58. I am 57, I left my job running crews doing high dollar construction installation because i realized that i could not perform at my own standards any longer so i took a job as a service manager in the same feild but i am having trouble focusing on my paperwork. It is odd,I have trouble with everybody's name or i'll drive by the job site or forget what job i was going to, but I can tell you my first phone# or itemize a bill for a job i completed a year ago.You can bring me a site plan on a project and i can do a design give you a full break down and estimated cost &amp; profit and can't remember who i did the job for. I took myself to the Byrd Alzheimer's Institute and failed their first testing.They want me to schedule more testing, should i bother we all know what the outcome is going to be. Since my wife passed away 2yrs. ago i have noticed that i have become a hoarder of junk and don't have the energy to do anything about it. Luckly for me i'm at home on worker's comp right now, hurt neck &amp; need rotor cuff surgery on left shoulder. Question should i opt out of surgery and try and enjoy what time i have, file for disabilty. I am greatful that my two beautiful daughters I raised &amp; their 7 children are my step-kids

Ken

September 3, 2012 6:13 a.m.

My father, who is a widower, was just diagnosed with Alzheimer's disease. I'm very worried especially as he has always been very independent. I want more information about what to expect and what can be done. Can anyone recommend any resources?

Peter

September 2, 2012 11:29 a.m.

husband is in stage 6 of early onset AD--is 69--10 yrs into disease. Remeron 7.5 mg am and pm is no longer dealing with anxiety. What other med is there? ,..heard about Respitol but cannot find its description.??

lee

August 27, 2012 6:52 p.m.

to Nancy: Yes you are right. Your mother should be kept on her home so long as she can do this. She must have help there with the caregiver. Your mother has in her home all the things she know. This is like safety.This is the safety. But she needs communication in the reality time not in the memories for lost her husband. So she will not search him in the reality. The caregiver has to know this.

Susanngab

August 22, 2012 8:12 p.m.

I need help! My mother is in late stage alzheimer's - She lost her husband (the love of her life) two weeks ago in a sudden illness. She lives about 300 feet from me and I am her primary caregiver - we have other folks that come in as well. The problem - my two sisters feel that mother needs a &quot;new beginning&quot; and should be moved into an assisted living facility - what kind of impact can this have on he at this time. Obviously, I feel she should be kept in her home for as long as possible, and given some time to adjust to life without her husband. What is your opinion. Thank you.

Nancy

August 12, 2012 10:57 a.m.

to Yvonne: the first point is, you are the help from your mother, not the daughter, not parents,only the help. If your mother does the right thing, you have to say the really moment what she does. But only what she does: I am washing my hands. Please say not: you are washing your hands. Because she thinks in I. When she hears anything, you have to say: I hear ...So you are not in your world, you are in your mother s really world. Your world is not your mother s world. Please try to take words from her words.And she is beginning to find her really world, so her brain becomes more really information. This is the input for her brain and the braincells are in connection. You have to do this any time. Then the output will be better. I wrote a book.

Susanngab

August 9, 2012 5:27 p.m.

to Yvonne, your mother is in the remember time, not in the reality like you. So you must do all the daily things slowly. She will do, what she can do: wash her hands herself. Not you, because
she must do her own thing. But you have to stand near by her and you have to speak aloud all the things your mother does with: I wash my hands and so on. Because she thinks this words.So she can find herself. This is the input for her brain and all connections in her brain will work. And then she gets better output. She has to do by herself any thing during the day.

Susanngab

August 9, 2012 12:57 a.m.

Has anyone heard of Mangostein (I'm not sure of the spelling) I'm going to buy some and see if it helps; I will keep everyone posted

Yvonne

August 8, 2012 12:43 a.m.

I never wanted to be a parent to my mom; I wanted to enjoy her company and memories of times we've had to love, to laugh, to live!
But I am her parent and I don't have the slightest idea what I am doing. I'm terrified to turn my back on her for fear she will fall, eat napkins instead of food, brush her teeth with something more toxic than toothpaste! I no longer sleep with my husband, I sleep with her because she can't find the bathroom or open doors, she covers herself with her pillow and puts her blanket under her head. But I know I am more fortunate than most; she remembers me and knows her loved ones!
This experience has been the worst thing that I have ever had the honor to go thru with my mom! She loves me and if I can be there for her at this horrible time I will eagerly be there for her!!
But I miss her so much, we used to talk at least three times a day and sometimes I forget and confide in her as I always had and she will ask me the same things over and over again, it's just easier to pretend everything is great and I calms her down and we go on and live this surreal way of life!
It seems so unfair that at a time when she should be enjoying her life and relaxing with little responsibilities she been robbed of any enjoyment!
My siblings are not there for her, because they are too busy or it's just less painful to pretend that everything is ok by not seeing her!
I'm terrified of the future and what we have to face but I will always be there for her because I love her!

Yvonne

August 5, 2012 1:04 a.m.

Cindy..... I just read your comment and was touched deeply for you and your family. My wife developed early onset but not as young as your sister. As you know, it is a difficult disease. Everyone seems in the process of mourning the loss of their mother, wife and sister. This is natural. My best advice is to just love her and help meet her daily needs. She is not making it difficult for all of you. It is the disease so give her the grace. When it gets too difficult, seek outside help for relief. Get your strength from God and trust that all of this is somehow a part of His bigger plan. Don't get mad at her. It does not good and only upsets you. Medication can help if she becomes aggressive. As difficult as it is, you will know when it is time for a care facility. I was a caregiver for my wife for eleven years. The journey is difficult but you will find joy in caring for this dear woman.

Donald

August 2, 2012 7:08 a.m.

This is aresponse for Marcia there areother drugs your doctor can try my mom takes lorazapam and seroquel 2 times a day.When she takes her meds it really calms her down, as she would get very aggitated and become very hard to deal with.Now we are in trouble because refuses her meds. when she took them regularly it helped her and us.

Anonymous

August 2, 2012 6:46 a.m.

My mom is in moderate to late stage alzheimers disease.She also has lung cancer.She smoked for 55 years.Our family had to make the tuff decision of putting her in an Alf with a lock down and at that time we signed her up for hospice care.My mom walks 16 hours a day.She cannot sleep she refuses her medication.She has this on going pain in her abdomen. When you enter hospice there are no more tests to let you know if the cancer has spread.I dont even think she could tolerate it.Any sugestions on how to help her? Frustrated and second guessing if we are doing the right thing.

Debbie

July 31, 2012 10:22 p.m.

we are helping our mother care for our father with dementia. Most of the time he knows us, can care for himself, and is happy. New medication, risperidol, is making him aggited and aggressive. We asked for a fast acting sedative to quiet him when he occasionally gets beyond anyones control and were prescribed more rispeidol. 6 days a week he is fine, we just want something when no one can control him. we want him at home and we feel we could manage for a longer period with just this little help once in a while.

Marcia

July 26, 2012 8:13 p.m.

Ironically I am the caregiver to my father, who is in the moderate to severe stages of Alzheimer's.

Cindy

July 26, 2012 8:02 p.m.

LightBridge Healthcare Research, Inc. new product is The Alzheimer’s Caregiver. There are 32 internet subscription based topics, called the Knowledge Base(KB). www.thealzheimerscaregiver.com
Topic #3 involves “Assisting with Activities of Daily Living: Bathing and Showering.”

Cindy

July 23, 2012 12:03 p.m.

Every 69 seconds someone develops Alzheimer's disease. Please share this video and one thing that you never want to forget to help end Alzheimer's. http://www.youtube.com/watch?v=xeHTTonG6co&amp;feature=player_embedded

Samantha

July 15, 2012 1:59 p.m.

for Judy
Your mother is not in reality place.She is in her memories place. You must find out, what hymns there are. When only the American, you
must put on the tv from July 4. You must have
a wonderful calender with pictures and great
numbers. And in front of her you must scratch
off the numbers until today. You must say the
realy day and what to do on this day. When it is in the morning, she eats breakfast, there is in front of her this you must speak slowly.
So she can see this things. You must do this every time you can. Please show this all person, so her brain becomes informations (input) The music goes away, because her concentration changes to the realy things.

susangab.

July 15, 2012 12:46 p.m.

answer for Pat
Your mother has to do body-recognition-training. Because she can not notices her whole body, head and her face. She can not does this herself.Perhaps in your area there
is a therapist, speciallized in this, who can
show how to do this.
for Mike
Here is a question to you. What your mother-in-law has to do herself? She must do ever-thing she can. And when your mother-in-law something does you must express her actions in simple words.You must not request that she remembers this or that. It is necessery only by doing because the informtions for her brain
(input) weake up the sleeping braincells.

susangab.

July 14, 2012 1:59 p.m.

In my work I see the necessery to chance the social lifestyle. Because there are the most of mistakes. The beginning from Alzheimer, De-mentia is only to seak in this aereal. The husbands,wifes, friends help to much. And so they do all things to fast. But the patient does nothing and so he has less information (less input in the brain, and also less output).But this is not only the thing.With other pathological systems the brain has pathological biochemicals.This is the way to stop Alzheimer disease:
We must change the social lifestyle.

susangab.

July 7, 2012 6:26 p.m.

My mom has been diagnosed for 10 years with alzheimer's disease. The past 2.5 years she has limited communication, stopped singing, stopped eye contact etc. Three weeks ago, she fell full force on her face, left side, eye brow, nose, upper teeth. Aside from healing exceptional quickly, swelling reduction, bruising etc, she has started communicating somewhat, definite eye contact, responds to commands, alert. Is this common, has anyone experienced this increase in responding to others?
My mother is 85 years old and is in great physical shape.
thanks in advance for any comments

Pat

July 5, 2012 9:54 p.m.

My wife and I just found this blog and are really needing some help. My mother-in-law is 85 and was diagnosed with AD in 2007 and we are the caregivers for her. She remembers so much of her early years, but within the last several weeks, her short-term memory has gotten so much worse. She is starting to not remember to eat and when she does eat, she is forgetting that she has eaten. We have to hide all of her medications, because we have caught her trying to take medicine within 30 minutes after she has taken it. Within the last week, she is really starting to decline and forgetting who we are, as well as her grandchildren. When we ask who we are or show her pictures of her grandchildren, she cant tell us, but she will sit there and smile. My wife and I are really wanting to do everything we can for her, but we really don't know what else we can do. Any suggestions????

Mike

June 30, 2012 1:34 p.m.

My sister was diagnosed with early onset alz at age 45. She is 51 now and in late middle stage. Her children, husband,our parents and myself are exhausted and devastated. Hopeless. No financial help since she was so young we didnt plan for elder insurance. Please help me.

Cindy

June 25, 2012 8:51 p.m.

My grandfather recently past away and as a response my father and i have collaborated on a project to help people with ALZ and make it easy for the families caring for them.(memvu.com)
Vote to help ALZ disease and my family's way to reach out to other families. Please help &quot;Memvu&quot; compete nationally for 1 of 12 grants of $250,000! By June 30th need 250 votes. All you have to do is 1) click the link www.missionsmallbusiness.com 2)select Login &amp; Support using your FB info 3) under Business Name enter &quot;Memvu&quot; (Shaker Heights, Ohio) and place your VOTE! If you know someone suffering from ALZ disease Vote! Share! Like!

Joe

June 19, 2012 3:40 p.m.

I read a very good article about identifying ALZ and dementia. Hope it helps y'all, I work with seniors and it has some good ideas http://yourseniorcarenetwork.com/Medical-Articles/taking-action-over-memory-lose.html

Mark

June 16, 2012 5:39 a.m.

My mother has been diagnosed with both short term and long term memory loss. The doctor says the long term loss is vascular &amp; the short term is dementia-Alzheimer related. My mother says she hears music (when there is none). She mostly hears hymns. Is this common? Also, when we go out to eat, when her food is brought to her, she immediately starts trying to give it away. I am mostly concerned about her hearing the music. Is this normal? Thank you.

Judy

June 12, 2012 12:51 p.m.

My 61 year old husband has been diagnosed with the early onset alzheimers disease. We could see the changes happening over the past two years but kept ourselves in denial of the changes we saw. Now after receiving the official diagnosis ... I'm scared as I read and learn all that needs to be done to take care of him. I work full time and it is already proving to be a challenge even though he has someone in the house with him. I have to work for the health insurance. He willingly gives up everything even without me asked as he knows he is losing the ability to make good decisions. Yet I already recognize that he is moving into a new normal for himself and it is me that needs to change so that I can be a part of his normal for as long as we have together. I'm scared because I've always relied on him for so many things. I'm scared because I am losing a big part of me. I'm scared because I don't want to fail him. I'm scared to be alone without him.

zbusybee

May 21, 2012 12:35 p.m.

I am 56 and have Early on-set Alzheimers. I have had an MRI and all the tests. My results of the neuropsychological evaluation was found to be abnormal. The finding say prominent frontal-system involvement. They say I am characterized by moderate to severe impairments in attention and executive functioning. They also say this pattern of deficits is been on the decline over this past 5 years. Would this mean I am in stage one or two?

Joyce

May 14, 2012 4:55 p.m.

I heard that Zoloft helps control the violence, is that true? My mother digs her nails in, beats me with an umbrella, hits, punches; she
did such a job on my arm once that it was sore for 3 weeks. She isn't violent with anyone else, but always wants to get her way. She once harassed a business person 3 times in one day.

Stephanie

April 30, 2012 6:21 p.m.

My husband, 93, had cancer ear surgery 7 weeks ago and it is not healing as it should. He has smoked a pipe for 70 years and that is stopping the oxygen from helping with the healing. In the moment, he understands and says he will not smoke and then 15 min. later he is smoking. Beside taking the pipe and tobacco out of his room (and of course having him very angry at me) is there anything else I can do?

Marie

April 27, 2012 9:15 p.m.

Cedric: I can assure you that you are not alone. I and many others are also on a 7 day a week caregiver schedule.

Mike

April 22, 2012 9:05 p.m.

My father has alzheimer's and I'm his caregiver 7 days a week.Finding support from others who ae going through the same really helps.

cedric

April 17, 2012 9:03 a.m.

I thought everyone would enjoy this article!
http://www.newsoxy.com/health/alzheimers-drug-early-signs-66316.html

Tina

April 16, 2012 11:55 a.m.

Angela
new info on the treatment of AD w Cog Rehab.
Dr Janet Lawrence, the Medical Director of National Government Services, the large Medicae carrier, has revealed that Medicare will no longer consider cog rehab a medically necessary service; reversing a long term policy that allowed providers to offer treatment to early AD patients with memory problems. This reversal in policy has been made even thought the NIH research review supported the treatment on both effectiveness and having a sound research basis Advocates of AD and Treatmetn should contact NGS and express their outrage of depriving Alzheimer patients of this needed required service.

Peter

April 12, 2012 2:41 p.m.

I would like to thank everyone for their comments below. I have been writing my own blog on the subject of Alzheimer's for a while now and, while I enjoy writing, it is great to step away from statistics and hear feedback from people who are going through coping with Alzheimer's first hand.
Really, thanks everyone!
http://alzheimersfacts.wordpress.com/2012/02/22/alzheimers-care/

Samantha

April 7, 2012 1:49 a.m.

Dear Deborah:
I can't give you articles but maybe my own experience will help. My mother is 93 and has advanced Alzheimer's. Throughout her life I rarely spent time talking to her about her mother, her grandmother and other relatives or what is was like for her grandmother and grandfather to immigrate here from Europe with nothing more than a dollar in their pockets. That history is now gone from her memory and lost to me forever. I cannot tell you how much I regret not probing that history when she could still remember it and having nothing written by her that memorializes it. I feel a true sense of loss not only because it is their history but it is also part of my history that I will never know. Please tell your husband for me that, while your children are too young to appreciate it now, as they get older they will crave the history he has not written for them and feel that they have lost part of themselves by not having it.

Mike

April 6, 2012 1:20 p.m.

My 49 year old brother has Early Onset and is already at stage 4. He has a 3 year old son and 4 year old daughter. I've tried to encourage him to write a legacy type thing for them but he doesn't think what's in the past is important or that his history is important (yes, very depressed). He is very intelligent so I would like to give him some articles to show how helpful and meaningful his past is and will be to his children when he grows up but haven't been able to find much. Can you refer me to a few that will encourage him to write for them. He loves them so and not being there when they grow up is one of the biggest pains in this diagnosis.

Deborah

April 4, 2012 2:00 a.m.

Dear Leigh:
You ask for help but I'm not sure exactly what you're looking for. Therefore, let me just say a few things. First, Alzheimers is a no win situation. There are approaches that can make a caregiver's life easier but nothing will make it easy. Second, learn as much as you can about Alzheimers and the plight of caregivers because that knowledge will help in making things a bit easier. Third, Alzheimers can place caregivers under extreme and intolerable stress. To reduce that stress one needs to learn how to continue loving your Dad while, at the same time, detaching your emotions from him. You can rely neither on his words nor his actions. In a sense, you need to begin building a semi-permeable wall around yourself. What gets through that wall is your love for your Dad. What bounces off that wall are his actions and statements that are attributable to the disease. Fourth, there is no right answer to whether home care, assisted living, or a nursing home is the best solution. It depends on a host of individual factors and the circumstances you, your mother, your father, and other family members are in. Fifth, begin talking to other caregivers. You'll find that the stress, confusion, impatience, frustration, and sense of being overwhelmed are not unique to you. More importantly, you'll find ways to survive the role of a caregiver and to reduce the level of anxiety you feel right now. Finally, a caregiver is a thankless job understood only by other caregivers.

Mike

April 3, 2012 5:19 a.m.

It is really difficult to handle people having Alzheimer as they have problem to forget. The home care services selection is the best way to care them.
Elderly Care

RamanMaan

March 31, 2012 3:31 p.m.

We just took my dad to a memory care facility-he's been diagnosed with alzheimers. they wer talking about 'sundowning'?? whatever that is? my mom and i took him there on a monday and visited him on the following saturday. not aware that we were supposed to wait two weeks. so we got him all upset - he was calling mom everyday telling her to get him out of there, that it's worse than being in jail. we were told that he had all of his things packed up and ready to leave. we saw this when we were in his room. i tried to explain that we needed to make his bed with the blankets of his that i'd brought for him several days earlier-without his knowledge. and fix his rocker so that he would sit comfortably in it. we seemed to do this with little effort. mom was ready to bolt out the door. i was trying to make dad comfortable. but there's a series of periods he's going to go through before he accepts this? i'm confused. the last few years before we were told to get into a support group and read up on this. but mom would have nothing to do wit it. so we are in the dark. we're going to attend the monthly support group now. help me out here. i've become her caregiver now. i'm tired. i have fibromyalgia and this stress is killing me. i love them both.

Leigh

March 24, 2012 10:39 a.m.

TO DON:
A couple of months ago, my mother also stopped eating, had difficulty swallowing, and her responsiveness continued to decrease. She's 93 and has advanced Alzheimers. As I stated below, I began using pure coconut oil. She gradually began eating again and is now eating almost normally. She has also become more responsive to us and, unlike before, is able to follow basic instructions. Since it hasn't been long, this may only be a short term effect of the coconut oil. I don't know. But, up until now it has resulted in a marked improvement of her condition. If you decide to try coconut oil, I've found spreading out the doses as evenly as possible over a 24 hour period works best. I usually give her three tablespoons a day but, if she wakes up in the mniddle of the night and starts roaming, I'll give her another tablespoon which, at least up until now, stops the roaming. I'm not advocating you try it but only describing my experience with it. Given the nature of Alzheimer's, each day I wonder if that's the day it's going to stop working.

Mike

March 22, 2012 9:44 p.m.

To Cheryl:
Based on my experience, what you are feeling is normal. To diminish the consequences to you, I suggest you first recognize that the disease has changed you husband and his actions are not within his control. His actions are not his but are the actions of his disease. You cannot only say this to yourself, you have to understand and truly believe it for it's true. The next thing I suggest is don't argue with him or contradict him. If he says the moon is blue, then the moon is blue. Don't go crazy trying to convince him otherwise because it will do no good and only drive you crazy. Also make up stories and excuses in responding to him. It does no good being truthful to a person who can't remember and doesn't know truth from fiction. So, whenever fiction helps, use it. I know it's very difficult but you can't pay any attention to accusations he makes. You must let them roll off you like water off a duck's back. People with Alzheimer's live in a different world. Instead of trying to get your husband's world to match our world, you must enter his. Instead of trying to bring him back into our reality, you must become part of his reality by conforming to what he believes is real and, when that cannot be done, using contrived excuses that you know he will accept. The only way to find out if an excuse will appease him is through trial and error. While this approach will make it easier for you, nothing will make it easy.

Mike

March 21, 2012 1:35 a.m.

Avant-garde research done at Beth Israel Deaconess Medical Centre in Boston by dedicated Dr Gul Moonis MD
1. An extremely rare case of Intradural Venous Varix that was for the first time encountered at Beth Israel Deaconess Medical Centre (BIDMC) as a intradural mass by the Dr Gul Moonis and her brilliant team. This has never been previously reported by any scientist working in imaging of CNS. This is an unprecedented case where the Intradural Venous Varix exhibited itself as a palpable mass like lesion in the lumbar region located along the dorsal aspect of the cauda equine. This path-breaking study by the team at BIDMC will stand the future neuroscientists in good stead as it could be included as a guideline in the pivotal differential diagnosis of a numerous intradural lesions encountered by clinicians and radiologists. In conclusion it can be stated with academic authority that this important study done at BIDMC Boston MA will go a long way in giving a fillip to the neuroradiological diagnosis of Intradural Lumbar Spinal Lesions in patients.
2. At the BIDMC in Boston , another unalloyed contribution was made by Dr Gul Moonis MD and her team of dedicated professionals when they studied Transient Focal Leptomeningeal Enhancement(LME) in Sturge-Weber(SW) Syndrome was studied threadbare using advanced neurodiagnostic techniques, on a patient with the SW syndrome reported to the department of neuroradiology with a history of focal seizures. A calcium gated channel study was

Lamb

March 20, 2012 10:57 p.m.

WHAT HELPS: My mother is 93 years old and suffers from advanced Alzheimer's. I've been caring for her since 2000. During that time, I've seen nothing but the continuing progression of this horrific disease. About 3 weeks ago, I started giving her 3 tablespoons a day of pure coconut oil beginning at first with only 1 tablespoon. For the first time, I have actually seen improvement in her condition. A few days ago I added 595 mgs. of Potassium Gluconate. (Potassium is an essential intra-cellular chemical needed for neurotransmitters to activate post-synaptic neurons.) From the first dose, the potassium seemed to add to the positive effects of coconut oil. Don't get me wrong, my mother still has severe Alzheimer's but, relatively speaking, the improvement is significant. Since it's only been 3 weeks, some may think it premature for me to post this but to see any reversal of her symptoms was so startling to me that I thought, even at this early stage, others should be made aware of this. Neither Aricept nor Namenda came close to the results I've seen in the last 3 weeks. I am intentionally not posting the brand of the coconut oil I buy because I don't want anyone to think that this is just a deceptive sales pitch. I haven't a clue as to whether the improvement will continue and I will not speculate.

Mike

March 10, 2012 8:52 a.m.

Both of my parents have dementia-don't know what kind. Dad is in assisted living and Mom in nursing home becasue she is sicker. She refused to walk about two years ago after surgery and refuses therapy for mobility. She can remember all the pictures of when she was a child and age 19 but cannot remember my children and grandchildren. Dad cannot remember much of anything. I take him to see her each day at least once; my parents are my life now and I moved them to my town 2 years ago. I feel very lucky to have them; however, there are some days I feel as though I cannot take it any more. But I love them and so it goes on.

tricia

March 2, 2012 10:00 a.m.

Doctors &amp; care facility administrators say my 68 year old brother is an anomaly; we have been unable to find a facility that will take him because of his aggressive behavior. He lasted 5 days in a private facility, broke a window out &amp; they wouldn't keep him. Meds have been tried &amp; retried without success. He was 1st diagnosed with Alz, then changed to frontal temporal dementia disinhibited; no one knows for sure what's wrong with him. He hallucinates, gets very emotional, gets nasty but gets over it quickly, becomes aggressive for no appparent reason; talks jibberish reptetively; becomes aggressive towards his wife, primary caregiver. We don't know what to do @ this point. Can anyone point us in the right direction? Thanks.

Donna

March 2, 2012 7:58 a.m.

What are the possible association of following with AD: lipoproteins and cholesterol, inflammation and immune response, metal toxicity and free radicals and cogarette or tobacco smoking.

Jamella Sy

February 24, 2012 1:53 p.m.

My husband of only 2 years was diagnosed with early-on-set Alzheimer's Disease moderate at the agge of 64 on both sides of the brain about nine months ago. This has become the most trying time in my life as his wife and caregiver. I feel as if I don't know how to help him with is everyday depression. Some days it is extremely bad. He has a counselor and a psychiatrist that he sees regular and is on medications for depression but it just seems to be getting worse. He seems to want to yell at me all the times to the point where he becomes angry and he accuses me of all kinds of things.That of course I have not done. Also I find it very difficult to deal with his rejection of me and he acts as if I am not even around. This disease is starting to effect my own health with all the things he expects of me. I have developed high blood pressure and just very nervous that I will say or do the wrong thing to set him off. I am 62-years-old and have been healthy my whole lifetime. Could any of the members of this blog please let me know if what I am feeling is normal?

Cheryl

February 23, 2012 1:39 p.m.

My wife first started to show signs of dementia when she was in her late 50's. She is now 77 and has been in a nursing home for 2 years and is in the late stages of Alzheimer's. In late November of this past year, she suffered a ruptured appendix which is still an open wound that is continually draining. Because of her being in the late stages of this horrible disease, the surgeon feels that it's best to just make her comfortable and pain free and as a family and because of her quality of life, we agree with him. She has now stopped eating solids as all food texture seems to be a problem. She drinks ensure but this is also becoming a problem as she is showing signs that she is having problems swallowing.
Would any of the members of this blog have gone through a similar issue with your loved ones? If so what can we expect. She still has good days where we can make her smile and seems to know that we care for her. On other days, she is unresponsive to us. She has been an extremely good patient, but now we are seeing signs of complete frustration. It is such a difficult time for her and keep wondering how long she can last under these conditions? I would appreciate seeing any feed back. I am new to this blog.

Don

February 20, 2012 10:41 p.m.

There are mote support groups available now than ten years or fifteen years ago. So that is good news for caregivers taking care of relatives,my aunt just passed away recently she had dementia but some days she was very coherent. So we as caregivers appreciates all the help and advice we can get. Thanks!

estelle

February 17, 2012 5:58 p.m.

Thanks for the info, Linda. Alzheimers.spouse.com looks like a great site. I can't wait to explore it. My wife, who just turned 80 has it. She started about 3 years ago.

Bill

February 16, 2012 9:37 a.m.

I just wanted to share this piece by Robert Leleux, which appears in today's NY Times health blog column; I hope you'll find it worthwhile and can post/share with others.
My grandparents both lived many years with Alzheimer's, and I found this article a comfort to read and a reminder of them.
http://well.blogs.nytimes.com/2012/02/16/finding-joy-in-alzheimers/?ref=health

George

February 15, 2012 3:19 a.m.

I just found this site. I have been talking to other caregivers on joang's Alzheimer.spouse.com for years. I suggest caregivers go there. My husband is 61 and has had Alz since 2006. First sign was repeating the same stories over and over. Now he speaks very little and cannot carry on a conversation at all. Then he could not use a TV remote or dial a phone. Today all he can do is walk, go to the bathroom with help, and occasionally drink from a glass. I do everything else for him-dressing, bathing, feeding, putting pills in his mouth, taking his dentures out and cleaning them, wiping his butt. He still knows most people, but not their names anymore. He used to run off, but now we have a keyed deadbolt.You caregivers need interaction with other pe.ople who are traveling down the same road

Linda

February 12, 2012 6:09 p.m.

Alzheimer's runs in my husbands family. He has not been diagnosed but forgets everything. Cannot figure out how to use debit card anymore, or cook, has difficulty with cell phone, sits among our friends and never says a word, repeats same story over and over. Or ask same questions repeatedly. Has far away glaze in eyes. And occasionally a raging outburst. Has charged at me twice. Am exhausted with trying to keep up with everything at home. Is this a normal process in the beginnig of the disease process? He spent 5 hours in a room with his daughter and didn't know it was her! His grandchildren have to introduce themselves to him if they see him in public because he wouldn't know them otherwise. Dr. gave him this mini test several years ago, he passed it. Any words of encouragement?

Lynn

February 9, 2012 7:40 p.m.

my maternal-grandmother suffered from dementia and i was blessed to be able to take care of her so the question is should i be worried that i could get it also she never got real bad and she loved her crossword puzzles

estelle

February 4, 2012 7:59 p.m.

I am 43 years old and am a recovering addict. I have not used for 5 years. I have suffered major head trauma. My maternal grandfather died from complications after a long, tragic and painful decline brought about by Alzheimer's. He was an alcoholic and had also suffered major head trauma. Should I be concerned about the connections here? I have assumed that my memory challenges were brought about by so many years of drug abuse and physical repercussions from my injuries, and should be expected. The immediate, and ongoing for that matter, results of my head trauma include dysphasia — which seems very similar to Alzheimer's. Are there preventative steps that I can be taking? at what point should I get 'tested'? what does testing entail?

Christopher

January 29, 2012 8:35 p.m.

WIFE HAS ALZ SHAKING IS GETTING WORSE. ANYING THING TO HELP WITH THAT?. TKS

Dan

January 27, 2012 10:11 p.m.

Karen, my wife who is almost 80 had a hard time eating. In fact she would gag pretty often. The doctor put her on Remeron and said a lot of people wouldn't take it because It made them gain weight. She has been on it for about two weeks, she doesn't gag anymore and has gained 3 or 4 #'s. She went all the way down to 100.4 pounde and has started coming back. She even looks forward to eating.maybe that's what your father is on but if not maybe you could try it. By the way it is also an anti-depressent. LVdd

Bill

January 24, 2012 3:33 p.m.

My dad is not eating the way he should stating that the food just doesn't seem to be going down well. They have given him the maximum dosage of antidepressants to stimulate his appetite. They are now going to get him in for a GI consult.
I have noticed that if it's a donut...he seems to swallow pretty well. :) Aside from my 87 yo mother who visits when she can...he is on his own at a nursing home. We are all over a 1000 miles away.
I have read about the decrease in the sense of smell which could contribute to the lack of desire to eat. Without the calories he needs in a day...he rejects supplements...he is slowing down more etc etc.
Any suggestions?
I thiank you.

Karen

January 23, 2012 1:12 a.m.

Kim, if you aren't a user of facebook become one and send a friend request to Norm Mac, he too suffers from AD and has a fabulous network of links apart from his own incredible contributions. Good luck xx

Shug

January 23, 2012 1:09 a.m.

I AM A 46 YEAR OLD WOMEN LEAVING WITH LUPUS FOR THE PAST 20 YEARS .AFTER MY LAST FLARE APPROXOMENTLY 8 YEARS AGO, MY ABLITY TO REMEMBER THING ARE GETTING WORSE. PEOPLE ARE ALWAYS TELL ME &quot;DONT YOU REMEMBER I TOLD YOU JUST YESTERDAY.&quot; I DONT REMEMBER IT AT ALL. DO YOU THINK I SHOULD GET TESTED TO SEE IF I HAVE ALZHEMEIMERS OR DEMENTIA? IF I CARRY THE GEN. MAYBE THERE ARE TIMES THAT I CAN DO TO BOOST MY BRAIN POWER. THEIR IS ONE IN MY FAMILY HISTORY AS FAR BACK AS I REMEMBER THAT WAS HAD ALZHEIMERS OR DEMENTIA.I FORGET IMPORTANT THING. NOT WHO I AM OR WHO MY FAMILY OR FRIENDS ARE. ITS VERY FRUSTRATING AND VERY IMBARISEN. PLEASE HELP!!! ANY AD VICE WILL BE GREATLY APPRECATED.

KRISTENA AKA TENA

January 23, 2012 12:59 a.m.

Arlie, I read your comments on Alz Coconut Oil and my heart skipped beats at the idea there was something to improve my mothers condition. I looked up the website and found only two testemonials and the contact address came up as invalid. From what you said it is a miracle oil but the website led me to wonder if it was just a quick money maker.

Shug

January 22, 2012 3:54 p.m.

I have an uncle with alzheimers(diagnosed 3 yrs ago) and is 56. My mother is forgetting things and may have it. My question to anyone is this.. I have heard of oxygen therapy and although it is not a cure I was wondering if anyone has a relative that has tried this?? Or any results good or bad that have come from this?? I realize this is some what new for alzheimers but to me it is another option to look into. Thanks.

Jerry

January 8, 2012 3:47 p.m.

After reading some of the comments, I realize everyone here is exactly where I was. I take care of my mom. Lewy Body Dementia since 2002 or 2003. I used to crush her medications and hide them in her food. I started her on Alz Organics Coconut Oil Blend from alzorganics.com a couple of months ago and she takes her own medication now, and many of the symptoms are gone. She is more social, less agitated, does not wander at night, and does not hallucinate while she is on the oil. This oil has been a great relief for me and I hope that some of you will try it.

Arlie

January 3, 2012 8:58 a.m.

Do you have any information on weight gain in Alzheimer's sufferers? My wife of 52 was diagnosed over two years ago with early-onset, and has gained weight over that period. I was advised that weight loss was typical. Await your advisement with interest. Kind Regards, Declan

declan

January 1, 2012 8:23 a.m.

Hello...
I am 48 years old in good health. I have experienced two incidents of forgetting things....things that i should have known. I forgot my PIN number for my ATM card...had to get a new card.. and never remembered it. About 2 weeks later, i read a text from my son to my husband...then 1 hour later...did not remember the conversation at all.
I know this may sound trivial, but it is extremely uncommon for me to forget such menial things....want to call my doctor...but don't want to be a hypochondriac.
Not sure what to do! Thanks.

Karen

December 10, 2011 8:45 p.m.

Keep these aitrcles coming as they've opened many new doors for me.

Quiana

November 29, 2011 7:33 a.m.

Hello, thanks for this opportunity, I only have some questions to the readers, the sister of my grandma has AD, well my mom has some symptoms of this disease so my mom can have Alzheimer

Felipe

November 24, 2011 6:23 a.m.

Why when researching Alzheimers on-line or in books does it always talk about the caregiver, like those of us with EOAD or AD all of a sudden can't read or write or type. Its like ppl talk over us, like were children. I wish others understood that we are not all &quot;unable&quot; with this disease. Learn to understand the disease instead of assuming we are all affected the same. Thank you-

kim

November 19, 2011 3:33 a.m.

To Patricia: My husband has been on statins for a couple of years now, but his symptoms started before starting the drugs. He was a chronic alcoholic for many years and also has been smoking since junior high school. He is now 67 and I can tell he is losing ground.

Jeanne

November 19, 2011 3:31 a.m.

Is one of the early symptoms of Alzheimer's the frequent looking off while driving? My husband has been doing this for a while and finds it hard to focus on his driving. He is also very aloof at home and doesn't like to &quot;discuss&quot; important issues.....like family functions, etc. or paying the bills.

Jeanne

November 8, 2011 11:49 a.m.

I would like to know how many of your family or friends were taking Statin Drugs prior to, or during diagnosis of Dementia or Alzheimer Disease.
Statins are like Crestor or Lipitor.
Please leave information on here. Thanks.

Patricia

October 24, 2011 3:00 p.m.

My husband was 49 when he was diagnosed with Alzheimer's. He is now 51 and seems to be declining rapidly in some areas. It is very difficult to understand what he is trying to say most of the time. Most articles are about people who are 65 and older. What about those in my husbands age group??

Melanie

October 16, 2011 7:16 p.m.

Angela
I couldn't agree with you more that &quot;millions more are affected through the gradual loss of their spouse, partner, friend, confidant, and loved one.&quot;
My son recorded a song that he dedicated to his grandfather (my dad) who has Alzheimer's and to all those affected by this disease, especially the loved ones who care for them.
I find it to be very comforting for caregivers in particular.
It can be found and downloaded for free at:
http://chrismathieu.bandcamp.com/track/fading-memories
It's there to be shared. I hope you and your fellow bloggers give it a listen.

Polo

October 12, 2011 3:06 p.m.

My mom made her transition 2 1/2 years ago from this horrible disease. She started having symptoms at 56 years old young.she passed away at 72. For years I was looking for anything any kind of methods to help her. I did have a great doctor. We even came to mayo clinic to see if there was something they have to slow the process down. She was an amazing woman. Only towards the end did she started degressing. Even towards the end she had spunk, loved music , tv, and food. Food was her passion. I kept her home with me. I just could not see myself putting her in an nursing home. The reason for my blog, is that she never taught to hate anything or anyone, but this disease I hate with a passion. there is no cure really no explanations to it at all. I have read that person or persons that have taking care of someone with this winds up with this disease. I am worried now. I am 43 years old. Wondering will they ever find a cure or even a vaccination to prevent things in the brain. Whenever I speak to someone that says they believe their parent is getting this. J just cry. I don't want for anyone to go through that. It's tough and highly emotional. At least for me it was and kind of still is. Please find a vaccine for this. A lot of people would love to pass on from normal age. I know I would
Still missing mommie

Monique

September 23, 2011 8:05 p.m.

nmy mother died last sept in holland of alzheimers she was 87 years old it started about 65 and slowly progressed she was stuborn but very happy she went to a group home with 9 people and was fantasticly taken care of also my brothers and sisters and i took good care of her it was a honor and plasure to take care of her i miss her a lot!

madzy

September 19, 2011 7:28 p.m.

My mother has advanced vascular dementia, and has begun to peel her fingernails and surrounding skin. She continues to communicate, typically with eye to eye contact. However, verbal requests to stop doing so and even directing her hands out of the way are unsuccessful. Does anyone have any suggestions to distract her from doing this and subsequently protect her fingers?

Diane

September 11, 2011 1:02 p.m.

My sister has looked after our 98-yr old mother for several years. She lives 10-min walking distance away (in Canada). I live in the US and cannot bring her to the US for care. Our mother was always tyrannical, but has now also become especially hateful and paranoid, mostly toward my sister but also towards anyone who has helped her. Her short term memory is gone, but she still has some faculties left. She hysterically refuses to change her ways or go to a nursing home. All she takes are blood pressure pills. Anti-psychotic and anti-depression drugs did not help much. It's extremely unpleasant to help her. Do we just wait for her to have some medical emergency so she can then be moved to a hospital and then to a nursing home?

Greta

September 8, 2011 3:18 p.m.

As primary caretaker for my wife I have experienced all of the problems that others have described.I have felt the anger at times but have kept this from my wife. One of the most difficult things to live with is the withdrawing and no talking for hours on end. The other is the refusal to take prescribed medications. I have tried the crushed pills,and everything else I can think of. If anyone has suggestions I would appreciate hearing about it. I DO appreciate this blog that I just became aware of.

Earle pWe7ur

August 31, 2011 12:47 p.m.

This blog is so helpful to those who are caring for loved ones with memory loss. My mother took care of my father for many years with his experience of progressive loss of his memory before anyone really talked about it. She would have greatly benefitted from sharing and learning on a platform like this. I am working with CerefolinNAC, in addition to taking it myself – being that I have a family history. With a diet targeting foods rich in folate may benefit those with Early Memory Loss, CerefolinNAC contains the active form, L-methylfolate for nutritional management. Ask a doctor and read more about it.

Amalie

August 30, 2011 8:58 p.m.

My sister has not been diagnosed yet but based on everything I have read about AD, I believe she has it. I know I need to wait until she is officially diagnosed but I want to do everything I can to help her. She is only 62 and I am 54. She has been a rock for me over the years and I want to do whatever I can. There is no doubt in my mind that she has AD and I believe that she also thinks this. I understand that there is no cure but medication that can help control some symptoms. I mostly want to know how I should behave so I don't upset her. I have to have surgery shortly and I want to ask her for help so she still feels I need her...she is still capable of helping in this regard...but I don't want to exacerbate her problems. Is this a bad idea?

Michelle

July 28, 2011 7:39 p.m.

I believe my mother has AD. She has all they listed symptoms. She has also stored her fecal matter in a bag in the pantry and smeared it in the wall. I have heard this is not uncommon. Has anyone else experienced a similiar symptom? Is is typical of AD?

Kathy

June 25, 2011 9:49 p.m.

I just found this blog today and wanted to share what has been a &quot;lifeboat&quot; for me and my sanity. My husband has bi-polar, panic disorder, paranoia, and schizoaffective disorder. My son has autistic traits, bi-polar, and an IQ of about 60. How have I survived? By the Word of God. I have memorized &quot;key&quot; verses that speak to my situation. For example, when I am deeply troubled (which is often) I remember Isaiah 26:3 &quot;Thou wilt keep him in perfect peace WHOSE MIND IS STAYED ON THEE.&quot; I listen to gospel radio and the excellent teaching which help me to &quot;set my affection above, and not on the earth.&quot; (Col.3:2) There IS power in Scripture and I am living proof of that fact.
Oh, by the way, our last child died in childbirth and that was our lowest valley. But Psalm 91:1 tells me that &quot;He who dwelleth in the SECRET PLACE of the most High SHALL ABIDE under the shadow of the Almighty.&quot; You see, I have been &quot;abiding&quot; as I memorized these words from my loving Lord. Hope this helps someone out there.

JM

June 25, 2011 4:23 p.m.

I am 66 years old and my husband is 67. He has Asperger's Syndrome, is a lifetime smoker and drank for several years. He has black lung, having worked a long time in the coal mines. His ability to carry on a conversation is becoming more and more difficult and I am definitely concerned with Alzheimer's. I would like to pass along something that works for me. I set him up on a wi-fi connection in the basement and he is now able to post comments and news articles on Facebook, etc. This requires him to use his brain and he can also &quot;connect&quot; with people where social functions are impossible. Hope this helps anyone with the isolation of this awful condition.

Jeanne

June 18, 2011 8:46 p.m.

I am a 64 year old woman and my husband has had alzheimers for 5 years since he was 61. I'm pretty sure it is genetic since his mom got it at the same age. I estimate that he is in high end of stage 5, not yet in stage 6. It was hard for him in the beginning because he knew what the disease was going to do to e is him. This disease takes everything away from you. He can't even enjoy hjs grandkids and have conversations with people because he can't get the words out.

Judy

June 16, 2011 10:44 a.m.

I found this website a few months ago! I am so sad that there are so many of us just trying to do our best and feeling lost, but you all are helping me. My situation is a little bit different. I am the caregiver for my 53 year old brother who is bi-polar and now has both Alzheimers and MS; (it took me a long time to face the fact and seek medical help when I finally admitted his problems were more than psychiatric) All this after getting myself back to a new self after the death of my 18 year old daughter. Now I am once again recreating myself, learning to be patient. When my bro does or says something that makes me shake my head I take a deep breath and give him a big hug when my first thought is to kick him in the ass.
We are in Canada and there are no long-term (or short-term)facilities for younger people - only seniors. At least the neurologist says my brother is &quot;passive&quot;.
I work full time, I put his meds in little zip locked baggies with the day of the week on it and a big sun on the packages for a.m. meds and a big moon and stars on the packages for p.m. meds. This only works if he can figure out what day it is and whether it is morning or night - if I get home from work early; I can't convince him it is night when he thinks it is morning even if he is looking out the window. And one more thing, he just called me (some days he can dial a phone) to tell me he accidentally took his dog's meds. Better not bite me or lift his leg when I get home!

Kathryn

June 1, 2011 9:10 a.m.

Hi . I'm 56. My dad developed alzheimers in his late 60's. He drank heavily for most of his life. I don't know if that's a contributor. Anyway. I'm worried about developing it. Sometimes I forget things or make silly mistakes.. It's one of my worse fears.. Is there any where that I can go to see what the signs and symptoms are. Thanks for your time

susan

May 30, 2011 1:23 p.m.

Great information - wodnerfully explained &amp; easy to read!

Julie ann

May 26, 2011 9:58 p.m.

Barb, your story is very touching. My grandmother had Dementia and my grandfather had Parkinson's disease and we experienced the long goodbye. I now direct a Adult Day Program and see this disease shatter families and steal their loved ones away from them. Many enter our day program in the mild stage and then over time they decline so fast. Others it takes years to see some decline. I hope your experience at your day program was valuable.

Jarod

May 4, 2011 8:50 p.m.

My husband of forty years passed away a year ago from this horrible disease..He had the disease for 10 years. I cared for him up until the very end..I couldn't bare to put him in a nursing home..he lost his ability to communicate and I was the only person he trusted...He went to daycare five days a week and I went to a support group....I was sixty years old when this began and on my 70th birthday I couldn't believe how old I was.
This illness was an absolute hell for me and for my husband..heartbreaking, absolutely heartbreaking..fear and sadness were the two emotions I felt on a daily basis..I don't believe I will ever get over this...it was very traumatic and jarred my very soul..I am at peace however, because I did everything possible to give my husband love and the very best care....I would do it the same way..no regrets and in spite of everything words cannot express how much I miss my husband...I missed him for a long time and my loss is only intensified since his passing....
He really became my child and I was honored to care for him!

barbara

May 2, 2011 8:30 p.m.

Some say go to support group but all meetings held in nursing homes which depresses my husband so he won't go. We married 7 yrs ago. He only worked about 2 yrs before his symptoms were so bad he was let go. I do not plan to be his caretaker after he can no longer care for himself. I see that as his children's responsibility. I am only 62 but was forced to retire to care for him.

renee

May 2, 2011 6:13 p.m.

Thank you so much for your words of encouragement. At times I feel like no one understands where I'm at in all this. Today did bring new challenges. My mother wants to come back to her hometown where I live.(it is about three hours away from where she lives now) She started to pack her car and I just happened to call to stop her. It's soo frustrating and hard for me to deal with. I'm not there so I'm so glad that my step dad is there for her. He is so sweet and positive but I'm sure he gets frustrated also. He reamins positive and so do I. I just wanted to say thank you again and this blog really helps me just &quot;get it out&quot; so I can remain mentally healthy. I pray for each of you and all of your loved ones. Much love to you all..

Daphne

May 1, 2011 12:19 a.m.

In reading many of your posts, I must speak up and tell you caregivers to get busy and join a support group. This is the best thing that you can do to relieve yourself of your guilt or misinformation. This was the best early decision that I made in caring for my wife for over ten years. My support group was tremendously knowledgeable and took more time than doctors to help explain what to expect and how to deal with problems that would arise. Search for a compatible support group and listen to all of the stories. The advice was very meaningful. Also, don't kid yourself about Alzheimer's disease. It is a progressive disease and the best that current medication can do is slow the process down. Enjoy each day for what it gives you because tomorrow most likely will bring new challenges. Control your emotions as best you can. The patient isn't doing things to make your life harder on purpose so don't allow yourself to get mad at them. It is the disease. You will only make matters worse if your argue or get frustrated outwardly. Don't be a hero! Ask and receive help. Your health is crucial as you are the last line of defense before a care facility. Your key responsibility is their health and safety. Don't compromise either of these or you aren't doing your job. Maintain life as close to how you had it before for as long as you can. Continue to go to church, trips, cruises, visits, out to dinner, etc. for as long as you can. Maintain your faith in God!!

Donald

April 30, 2011 2:05 a.m.

cont. of posting below.
I am 43 and have fibryomyalgia, strange neurological problems, and arrythemia that different specialists cannot figure out. I have spacey feelings in my head as if I'm about to pass out but I don't pass out. I have had problems with my speech...stuttering on words or my sentence comes out with the 1st &amp; last word switching places. I feel as if I'm having what is discribed as a mini stroke...but drs cant seem to figure it out. Since my dad started having early memory loss at 52 I am concerned for all of us in my family since the memory loss is irreversible and it took 11 years for drs to finally diagnosis my dad at 63. Could he have been at a better place now memory wise had he started medications much earlier. We will never know that. Should all of our family be genetically tested? What are the adverse affects of the medications? and if it's say kidney damage...which is worse...loosing your mind or dialysis?! I'd take the dialysis! It breaks my heart to see my dad who was such a confident man &quot;the leader of the pack&quot; of all his friends now be withdrawn from all of them. He follows my mom around the house or just sits in a chair staring out the window for hours. I want to be pro-active with my dads care and mine. Because my drs have not found a definitive answer to my physical ailments they tell me it's &quot;stress&quot;. I quit my job 9mos ago and do things I enjoy but my symptoms have not changed. Very frustrated! And praying for our fa

Steph

April 30, 2011 1:37 a.m.

My dad retired at 52 yrs of age because HE was noticing memory problems. We had no idea but within 2 years our family and his friends were also very aware. My mom has been taking him to local drs. (who were older than my dad) who would tell my mom that he is fine! That we all start to have forgetful moments and it's a natural part of aging. This went on for several years and his memory loss, repetativeness, and withdrawal from everything he loved to do brought him to be angry. Then the drs precribed anti-depressants for him saying that was the problem. My mom went into the dr crying on many occassions and felt terrible having to explain to drs infront of my dad all the symptoms he's been displaying. Again this went on for years. My dad was angry that he was having to go to another dr...even though he knew himself he probably had alzheimers. He could recall stories in great detail but send him to the car to get 2 things and he'd return with 1 or nothing. My mom got finally got him in to a specialist who did an MRI &amp; cognitive testing and said my dad was fine. Not Alzheimers. Last year at 63 he was FINALLY diagnosed with &quot;Memory loss&quot; &amp; possible Alzheimers amd put on medication. This has been so extremely depressing for all of our family, especially my mom who has been trying to get ahead of the disease and stop it's progression but could not get the diagnosis! His medication has not seemed to help. We are all extremely worried and sad.

Steph

April 26, 2011 6:41 p.m.

My mother is 61 years old and was diagnosed with this horrible disease just two weeks ago. I don't like in the same city as she, so it's that much harder. She married my step father 12 years ago and moved 3 hrs away. I'm holding on to my faith that she will be healed soon, but I wish there was more that I can do for her. She was misdiagnosed two years old by a doctor stating that she had Ischemic White Matter disease when it was really this demon. She grew sick in those two years by taking different patches. She has lost almost 20 pounds as a result. She only weighted 115 to begin with. I'm so angry that this has happened and that she can barely remember my conversation from the night before. I'm faithful. I really am, but I'm scared. I talk to her often (on average 10 a day until time for bed). I'm scared to go on a small trip with my husband for a couple of days just in case she needs me. Can someone help me with this? I feel guilty that I'm not near her and she needs me to be there, but I can't afford to leave work to stay with her. I love my mom. she is really my best friend. What else can I do to help her husband?? I'm so scared!!

Daphne

April 26, 2011 12:32 a.m.

My father was admitted to the hospital and died one month after that. He seemed to understand what you were saying but got to where he couldn't speak after a couple of days. Was it medicine that made him not speak? Could he hear us and just couldn't communicate. They said his kidneys were failing. He couldn't control bathroom functions. He just layed there. He was awake and would fold his hands like he was praying to take him. He couldn't hold his eating utensils. Would eat grapes by himself. I am so afraid that we let him suffer and he was trying to tell us something but couldn't. I keep replaying this and wanted to do more.

Debra

April 21, 2011 5:53 p.m.

I am the only caregiver for my mother in-law, I deal with anger, sadness, grief, despair. I only know my mother in-law for five years before onset of Alzheimer. How do I work through these feelings? I read everything I can about the disease but still feel at lost.
Any help would be truly accept.

Carmen

April 20, 2011 8:59 a.m.

I don't know anyone with Alzheimer's. I feel very sorry for the families that have to go through this. I have written a book to help families capture special moments and record history before it is too late. This information could be helpful to these poor families. Please check out my website before deleting this message. Digitallegacybook.com
Thank you!I realize I am breach

Paul

April 8, 2011 8:46 a.m.

My husband was diagnosed with Alzheimer's in Dec. 09, at the age of 60. We both retired in 2007, I was 51 and he was 57 years of age. I began to notice small things and it wasn't long I knew we had a problem. He did have a para-thyroid issue but after that was corrected his cognitive thinking was still messed up. He has forgotten how to sign his name and is easily confused. He still knows me and he is such a gentle man I can't imagine him becoming violent. I thought maybe he had some kind of percussion injury from his year of service in Vietnam firing a 155 howitzer, like the football players are experiencing but he is not violent. That seems to be present in all the players with that injury. The neurologist didn't think it would be progressive if it was from percussion injury. I haven't joined a support group because our community is too small for a early onset group. Stay strong!

shelley

April 7, 2011 10:24 a.m.

I have been in the field of gerontology for many years. As a retirement community director, I used to get very upset to see a large family not work together to help their elderly loved one. I noted that when my resident developed Alzheimers, the family seemed to flee like rats from a sinking ship. It is as though the person has the plague. My mother deveolpoed early onset A.D &amp; to my fury, my own family has now done this leaving my sister &amp; I to do everything for our mother. I am beside myself with anger.

Sherrie

April 6, 2011 12:01 p.m.

Would like to know if anyone's neurologist has suggested a brain shunt for treatment of Alzeimer's. The falling, urgent urination and dementia also fall into the relm of normal pressure hydrocephalus (NPH). From comments looks like some people could be helped by a shunt.

barbara

March 26, 2011 2:36 p.m.

We are a team of Boston University students working on developing a new product designed to be used by senior citizens, especially those suffering from Alzheimer's.
We have created a survey that will help us with product design, pricing, and demand forecasts. We would greatly appreciate any responses - it should not take more than 15 minutes of your time.
Thank you.
This is the link for the survey: http://atrial.qualtrics.com/SE/?SID=SV_aXYiSnsuWJcFqgQ

BU Students

March 23, 2011 12:01 p.m.

I have alzheimers and I want to know how and why I got this disease. Please help me asap because I'm dying from it!!!!!

Koko

March 21, 2011 10:01 p.m.

It was a inspiring post and it has a significant meaning too and thanks for sharing the information.Would love to read your next post too......
Thanks
Regards
wheelchair

wheelchair

March 19, 2011 12:48 a.m.

I have had many surgeries, can this have anything to do with memory loss? I have two sisters one in late stage alzheimers. I have began having to grasp for the right word or loose my train of thought.
One thing that hurts me the most is my children do not understand and looses patience with me. They can't stand me saying something more than once. They can not understand that this is something that I can not help. They just get angry. It hurts so much. People should have patience with anyone that is struggeling for words to say. It's is so scarry and the doctors doesn't seem to want to help at all. I also have an Illiostomy and have to care for my self. At times, it makes you want to just die.

Kelly

March 7, 2011 8:30 a.m.

My parenter for 26 years and I have seperated. He went to live with his family. we haven't seen each othe in 6 months but we do tak on the phone. I'm planning on going to visit him .
Is this a good idea? I don't want to upset him.

GeorgeAnn

March 3, 2011 11:27 p.m.

I really appreciate your post and you explain each and every point very well.Thanks for sharing this
information.And I’ll love to read your next post too.
Disability Products

Disability products

March 3, 2011 9:48 a.m.

My mother's disease seems to be progressing - she now gets easily agitated in the AM after I leave for work even though the same caregiver is with her that she has been with for months. Any suggestions on how to calm her agitation? We have tried following the exact same routine, offering the same &quot;projects&quot; to keep her occupied, but nothing seems to help.

Pat

February 27, 2011 7:35 p.m.

We had to put Mom in a nursing home 1 year ago which was extremely difficult but my Dad and I could not take care of her any longer. She was very abusive to my Dad to the point I thought I might lose Dad. It took time but she has adjusted and seems to be happy but is still confused.
I am in my 50's I am noticing that I will be driving down the street and just not know where I am for a minute or two. Other than that I feel like most people just forgetting certain things. My question is has anyone with a parent with alz. been through any testing to see if you have &quot;the gene&quot; and if so would you advise doing so? I would really appreciate any comments. Thanks!

Gail

February 24, 2011 12:07 p.m.

My husband is in the early stages of Alzheimer's regarding his dementia however, he is falling very frequently. His last 4 falls, he has fallen backwards.This concerns me because he has Osteoporosid and has fractured a bone in the last 2 falls. He uses a cane and a walker. Any advice?

Lois

February 9, 2011 8:12 p.m.

My Father has Alzheimer’s and experiences episodes of wandering and fear of him becoming lost is a family concern. Recently, I coordinated an independent test of a tracking technology by EM Finders Frisco Texas; the test was watched by 10 credible witnesses. My father wears a wristband that utilizes cell phone technology and interfaces in the recently upgraded 911 system. In the event of a loss my mother notifies 911 to report my father missing and then places a second call to an 800 number for device activation. Once activated the device location appears on computer maps within the 911 control center. A 911 dispatcher then sends emergency personnel to the location for recovery.
The group witnessed two tests. In test one “a device purchased by my family” was located in 10 minutes within 100 yards of the device location. In test two, “a police officer controlled device” was located within 20 minutes and within 100 yards of the device location. There are other products on the market that use GPS technology and there is also a law enforcement offered solution through Project Life Saver. Improvements in wandering technology can improve quality of life, allow Alzheimer’s patients to stay home longer and save recovery dollars. I encourage families of Alzheimer patients to discuss technology option with your local police and emergency personnel. My research indicates many of these professionals don’t know these tools are available.

Rod

February 5, 2011 11:43 p.m.

In 1997, researchers found that there was widespread peroxynitrite-mediated damage in Alzheimer's disease. Among the myriad of factors that lead to peroxynitrite formation are high glucose levels, high blood pressure, bisphosphonate osteoporosis drugs, mercury, aluminium fluoride, and stress. Polyphenols in various fruits, vegetables, and spices, and polyunsaturated fats (such as fish oil) help prevent the formation of peroxynitrites.
In 2007, investigators discovered that rosmarinic acid, a natural scavenger of peroxynitrites, protected against memory impairment from the amyloid beta protein in mice. One year earlier, the researcher Yoshifumi Irie concluded that another phenolic compound--eugenol--inhibited the excess influx of calcium into neurons thus preventing neuronal cell death. He stated that eugenol is a good medicine for Alzheimer's disease.
Eugenol is found in a number of essential oils such as cinnamon leaf, clove, rosemary, and sage. Thymol (in thyme), carvacrol (in oregano), and perhaps limonene in various citrus oils similarly scavenge peroxynitrites and partially reverse their oxidative damage to receptors involved in smell, mood, sleep, and short-term memory.
In 2009, Japanese researchers treated 28 dementia patients (17 of them with Alzheimer's disease) with rosemary, orange, lemon, and lavender essential oils (via aromatherapy) for 28 days. All showed significant improvement in cognitive functions. This disease can be treated now.

Lane

January 30, 2011 3:42 p.m.

ALZHEIMER and ALUMINUM
Is there any discussion on these ever increasing blog and info web site on alzheimer regarding the current ongoing research that claims. Although aluminum is not a heavy metal, it is contained in all kinds of consumer products and household items. Studies suggest that aluminum might have a possible connection with developing Alzheimer's disease. Aluminum toxicity affects the central nervous system, kidney, and digestive system. There is a strong connection between aluminum and Alzheimer's disease. Research clearly demonstrates abnormally high accumulations of aluminum within the brains of Alzheimer's victims. The connection between aluminum in the brain and Alzheimer's Disease is so convincing that various studies are under way to explore whether aluminum in the brain can be removed, and if so, to determine if this would be beneficial for Alzheimer's patients. What are the sources of aluminum that contribute to toxicity? Aluminum is an ingredient in a wide-range of items that many of us use every day. Some of these products include processed foods, medications and even personal hygiene products. Aluminum sulfate is used to purify water. Processed cheese (please note the word processed) contains the emulsified sodium aluminum. Table salt (again processed) contains sodium silicoaluminate and or aluminum calcium. Cake and flour is whitened (again processing ) with potassium alum. Unfortunately aluminum is easily absorbed into the body
I do appreciate t

Sharon

January 20, 2011 4:48 p.m.

I recently received an e-mail from a friend of the family about taking small amounts of Lithium Aspartate to stem the tde of Alzheimer's. I did some research on line and read several articles that seemed hopeful. What is your take on the use of Lithium Aspartate or Lithium Orotate?

Mike

January 20, 2011 12:13 a.m.

For as long as I remember I have always written about my grandpa. My grandpa suffered from Alzheimer's Disease for many years. It was absolutely debilitating and the worst part was that I never saw it coming. He died on December 17, 2010, the day after I came home from college.
My creative writing teacher told me that sometimes you write about the same thing because you aren't finished with saying all that you want to say. I wrote pages and pages of every form or poetry, short story, essay, speech you could think of, but it never came out right. The day I wrote his eulogy, however, I felt that the need to write the perfect story about my grandpa was put to rest. So, from now on, instead of writing about my grandpa, I will write to him, detailing as much as I can about my life. I want him to be in my memory always because I wasn't always a part of his.
In his memory, I have created a blog (www.deargrandpa1.blogspot.com). Included in this blog are advertisements that earn money through clicks, traffic of the website, etc. Every penny that I earn will be donated to the Alzheimer's Association (www.alz.org) to fund research towards curing this terrible disease. Please help me make this dream come true. Every visit and comment helps.

Lex

January 16, 2011 7:33 p.m.

This is to Donald. Thank you for your beautiful post about your wife. I went on a hike once with the Sierra Club and the leader told me he'd taken care of his wife for 8 years. Now several years later and in his late 70 or maybe early 80s he's still climbing and hiking to above 10,000 feet. I agree that without faith and outside help and support it's just not possible. A friend of mine put it like this: &quot;stay connected&quot;.

kate

January 5, 2011 11:17 a.m.

My husband was diagnosed a year ago at age 61 as having early Alzeimer's. Now he has recurrent prostate cancer after a prostatectomy 3 1/2 years ago. How (or WHO can help us) can we evaluate whether he is likely to die from Alzheimer's before prostate cancer? At this point he is still working and active. We live in SE Wyoming - is there a doctor located along the
Front Range of Colorado who is an &quot;expert&quot; in both conditions?

Sherry

January 4, 2011 3:44 p.m.

Hi, Angela and Fellow Readers--I just discovered this resource and look forward to reading/conversing. I've just started writing about my experience with dementia in my mom and would love input. Here's my URL: http://mytaffypull.wordpress.com/. Welcome, all.

Tinky

December 28, 2010 11:21 a.m.

Where can I find accurate layman information on Atypical Alzheimer's Disease? Looking for as much information as possible on what it is, causes, coping and potential treatment options in the future (studies, etc).

Carol

December 23, 2010 8:33 a.m.

&gt;Namenda is known to cause stomach distress. We have this problem every morning; it seems to disappear in an hour or so. What have you found to overcome the feeling of nausea at breakfast time?

ed like in fred or ted

December 21, 2010 11:52 p.m.

A lot of people have a difficult time taking cares of their loved one's needs. This is especially true with helping our loved ones use the bathroom. The COCO Bidet makes it so much easier to help clean our loved ones after they use the toilet. The COCO Bidet helps making the whole ordeal of using the bathroom much more pleasant for everyone. Please visit at http://www.biolifetechnologies.com

jOHN

December 21, 2010 3:28 p.m.

Our mother is in late stages of Alzherimers. They are now in a retirement facility, been there one week. Mom is being extremely mean to dad when it comes to living there and sleeping there. Always arguing, refusing to sleep, but always nice to visitors. This is tearing me up. I know it's the 'right' place for them, but the guilt is making me depressed and stressed. Going to seek professional help is not an option, money is tight. Just hope I can make it another day, week, etc., Christmas this year is very sad.

Carol

December 19, 2010 8:40 p.m.

This past week, my dear wife passed away after living with the ravages of eleven years of AD, ten of which was in our home. I was the sole caregiver as she was mostly cooperative. There was some aggression but the incontinence was the most difficult to deal with. I want to encourage caregivers to recognize their limits in their caregiving. I was extremely blessed to find a care facility close to my home (4 miles) where she received excellent loving care. Don't think you are the only person capable of giving your loved one proper care. My wife had begun to fall and continued to do so in the care facility. I am grateful that we were able to qualify for hospice care. They did a wonderful job. Over these years, I've discovered that there certainly are worse things than dying. I began to pray that my wife would be healed as I knew that the moment she breathed her last she would be healed and in heaven which she desired. I also encourage you to have an active faith in God as this is what has made it possible for both my wife and I to endure Alzheimer's disease to the end. She is now going to have Christmas with Jesus. What a gift for enduring to the end. I'm not sad but joyful as my wife is no longer trapped in her body with a mind that didn't work. She is now healed. Merry Christmas..... my best to you caregivers. You are doing God's work!

Donald

December 14, 2010 8:33 p.m.

I am a fulltime caregiver for my mother. This is in response to Mary, a caregiver (post: 11-22-10). I had the same problem. I tried bandages, but found I had to apply them 4 times a day to no avail. My caregiver suggested a white cotton glove) available at any drug store). This has been a huge success for us. While we use only 1 glove, others may need 2. You might also consider retro gloves(circa 1950). Mother seems to enjoy &quot;putting on her gloves&quot;. Good luck and God Bless!

Meg

December 14, 2010 5:35 p.m.

This morning after months of waiting we finally have an appt. at the Mayo Clinic. Even though the appt. date is months away it still gave us hope.I cried just at the thought of having someone to speak with and have my questions answered,. My husband and I are alone as caretakers for my mother-in-law. She was diagnosed with Alzheimer's at 73 yoa. The sad thing is that her body is in such wonderful shape. I feel guilty even saying this but anyone who deals with this disease knows how devastating it is to watch the mind go while the body pushes forward.We sold both our homes and all possessions just to get her to a wonderful treatment facility. I know there is no cure but still we needed hope and a support system. She is currently living with us and we find every day to be more challenging than the next. Sometimes I question if it is really Alzheimer's or behavioral problems from depression. These are questions we need answered so badly. We are in the worse stage where it seems that everything we do is wrong. She gets so mad and irritated at everything.If she told me to turn right and I did she will say why didn't you go left. Or my favorite is &quot;you think I can't do anything&quot; this was said after asking which sponge she had used to wipe a counter off. Is this normal? Or as normal as it gets? We feel like we are the ones needing treatment. Is there a support group in the Fernandina Beach area that anyone knows of? HELP!

Laura

December 13, 2010 12:19 a.m.

Ann..... My heart sank as I read your comments. I've been in this caregiving role for eleven years so I know how cruel the disease can be. You need a support group of people around you. They are out there, you just have to reach out. I would start at the Alzheimer's Association and find a local support group to join who can listen to your frustrations and concerns and give you advice from their experience. You need to educate yourself about the disease. You are only one person and you are not superwoman. Your description sounds like it is dragging you down rapidly and you cannot allow this to happen as you are the last line of defense. It sounds like you may be reaching the limit and should have professional help. Don't feel guilty. Your duty is the health and safety of your Mom. You do not have to be the 24/7 caregiver. There are loving wonderful caregivers in care facilities but make sure you choose wisely. You need to talk to your doctor about your mental and physical health because stress can cause you to fail yourself rather quickly. May God give you strength and wisdom as you deal with the declining health of your Mom and your sense of responsibility to care for her.

Donald

December 12, 2010 9:57 a.m.

My mom has alzheimer's - it's really tough being the
only daughter taking care of her. She wakes me up
during the night and sleeps all day. The toughest part of it is that there is no family support --
and I feel like I'm in this alone --I'm always tired and
it seems that no one cares. There are times I just don't know what to do. I'm trying to keep her at home as long as possible but how do I know if I'm keeping her at home for my benefit or hers? It's such a cruel
disease.

Ann

December 6, 2010 11:41 p.m.

Will someone please tell me where to begin. I have an elderly mother 88yrs. I've been caring for. She is diabetic and severe arthritis of the knees. Now her sister who is 90yrs and has Alzheimers has recently moved in after the death of her husband. I have chronic severe depression and on disability due to a back injury. Someone please help.

Judy

December 6, 2010 8:36 p.m.

3 weeks ago during the graduation ceremonies of our grandson from Marine Boot Camp, we got a call from my sister-in-law who was staying with my husband's Mom. She said Mom was calling her Mildred and insisted she was not her daughter. We said she had been doing some weird things lately and we thought she had some kind of dementia or had some small strokes. The Monday after we arrived back home I took her to the doctor, and Internist that specializes in geriatric care gave me the diagnosis of moderate to severe Alzheimer's disease. We got her on 2 types of pills AM and PM and in the last week she has digressed drastically, so that we are now monitoring her meds and she is never left alone as she becomes agitated and anxious. Has anyone had the disease progress very fast. 3 weeks ago she was able to care for herself during daylight hours and now she is wandering at night, not sleeping, unable to handle her meds and cannot be left alone at all. I am her daughter-in-law. We live together thankfully. I am her primary caregiver and she seems to defer all decisions to me. My husband, her son, can do no right. He gets blamed for everything that she perceives as being wrong. Is that because he has always been closest to her of her children. Has anyone had this experience. Thanks for listening. Melani

Melani

December 1, 2010 4:43 p.m.

I am 80 years old, and am still working full time in family business. I believe that I am addicted to only one thing...and that is exercise. I try to walk or hike nearly every day. My wife of 60 years passed away last February. She showed some early signs of alzheimers, and her mother was in a nursing facility for 11 years. My wife's death has been very emotional for me, but I am determined to stay in shape. I will always do my best to be fit, and it is my belief that keeing your weght down and staying very active is the best way to delay or stop alzheimers. Do not sit around and watch TV. Get up and keep moving!

Robert

November 25, 2010 11:33 p.m.

Alzheimers is a devastating disease. People usually forget that its almost as hard for the patient than it is for the patients family and friends. Alzheimer patients are affected socially more often than not. They know that something is wrong and usually don't speak as much because of it. The best thing to do is consistently talk to them. Contact is the best way to help alzheimer patients. Playing games...scrabble...or simply talking to them. I have also recently found a website called www.alztea.com. They claim to be selling Alzheimer's tea. It may not be true, but anything is worth a try. Hopefully this helps.
Thanks for listening.

Jonathan

November 23, 2010 11:19 a.m.

You can access Centerna Health here:
http://www.centerna.com/

Connie

November 23, 2010 11:17 a.m.

Caring for a loved one with Alzheimer's Disease can be so difficult. In our situation, it really helps that we found a trusted resource for support. Our family watches over my mother as much as we can, but there are times when we need help and Centerna Health is always there for us. They'll send a caregiver over on late notice, even for just a few hours. This flexibility really helps our family save some money and time when we can't watch over her ourselves. I recommend building a relationship with an organization like Centerna to help provide care for your family member.

Connie

November 22, 2010 7:14 p.m.

I am a caregiver for two elderly people. The wife has Alzheimer's and the man is so strong they are both 90 years old they are exactly one month apart in their birthdays. The reason I am posting a comment is because I am not sure how to stop my lady from biting her nails and sucking on her fingers and she always tells me that she is not doing this. Her fingers are totally raw. I feel so bad for her. They are wonderful. If there is any way to help to get her to not do this to herself I hope that someone could please let me know what they are doing in this experience of probably the ending stages of Alzheimer's. This is just such a cruel disease because they can live for a very long time.

Mary

November 21, 2010 8:15 p.m.

Note to Jo Ann - My dad died in July of 2010 at the age of 89. Besides dealing with the grief and loss of his passing, I was shocked when I called my mom a week later(I live out of town and spent a week and a half with her) and she didn't remember going to the memorial service nor my visit. She thought we had the service without her. I tried to remain calm and talk her through some of the events until she calmed down. But it broke my heart that she couldn't remember and she was so upset with herself for not remembering. After getting off of the phone, I called her nurse to ask how I might better help Mom. She suggested bringing over pictures, using a calendar in her apartment and writing down each time an event takes place or people who visit. We've also since given her memory picture album of she and Dad and momentos from the service to surround her with. It's very hard at times but we do know she looks at the pictures and reads the captions and words. She forgets so much these days, but she's still Mom and she knows we care. My deep condolences to you and your family.

Karen

November 17, 2010 10:41 p.m.

My Dad died 5 weeks ago at the age of 84. His passing was kind soft and he was so ready to move on. When he left us he also took my 78 year old moms memory with him. She so struggled with his death ,it took over 4 week before she could remember that he had passed. When she would remember she would relive his death every time. You see she would ask us where he was and each time we had to tell her he is gone. The pain in her eyes is so heart breaking.She would get mad at us because know one told her that Dad had died. We found a few ideas that helped her come to terms with and find some way for her to remember. We are still struggling with her and the time line of our beloved Dads death . We always new Mom had advanced dementia but, when we lost Dad we never dreamed it was as bad as it was...

Jo Ann

November 15, 2010 9:28 a.m.

I am caring fro my elderly dad who has mid stage Alz. One of the most important things for me has been knowing what to expect. Once I'd learnt a lot about the diesase and the stages and what happens at each stage, life became a whole lot less stressful. It is a struggle every day, as it really is the 'family disease' as it affects all of us. A colleague put me onto a wonderful resource, a free bonus book all about Alzheimer's and Dr Lamont, the author, guided us through the stage and what we could expect. She gives a lot of practical information and tips to help keep Dads mind as sharp as possible for as long as possible. We make sure he eats very well, lots of omega 3 etc, all the good brain food, does brain exercises each day, like the crossword in the morning paper, and gets some fresh air and walking in most days. Hopefully this could help your followers too.
Seven Second Memory ebook

Iona Askew

November 11, 2010 7:29 p.m.

A note to Jackie....... Your friend needs to locate someone close to her that has business experience to help her and her husband through this difficult time. The disease will erode her husbands ability to make rational decisions in the business and in their personal finances. Part of her accepting the reality of his disease is to become assertive and to seek help from a friend, accountant and lawyer. The sooner the better. All of her family's personal affairs need to be attended to while her husband is still able to sign his name and has some ability to reason. Powers of attorney must be in place because the day will come when he will not be able to act. It will be a difficult emotional time but for her future and that of her two teenage boys, it must be done. My wife had early onset and it was less than two years before she was unable to sign her name. Do it now!

Donald

November 8, 2010 5:41 p.m.

I need some advice. My best friend is 45. She married a man 15 years older who owns his own business and has been diagnosed with early onset. His mother had the disease. Her husband is having difficulty coping with the diagnosis and has not created a long term plan for the company / family. They have two teenage boys and will have little income if he &quot;retires&quot;. My friend is depressed and not coping well herself. All she can see is a bleak future. How can I help? How long before he is not able to work at all....he is not really functioning now. any advice is appreciated.

Jackie

November 4, 2010 8:10 p.m.

My husband is in the mild/moderate stage of Alzheimer's. One thing that helped me adjust to the diagnosis was that it could have been cancer. That helped me somehow. Now he's also been diagnosed with bladder cancer. He will probably need his bladder removed as it has spread further, but I don't know how he could handle that. I'd hate to have to make the decision whether or not to do that. Has anyone else had to face anything like this?

Ellie

October 26, 2010 12:28 p.m.

I’ve now watched both grandmothers’ succumb to this terrible disease. Thank you to the Mayo Clinic for setting up this feature. The more people that can make connections and share experiences on how to cope and manage the better. This is one of the reasons I work to support new advances in Alzheimer’s research. http://www.alzinfo.org/blogs

Betsey

October 25, 2010 8:13 a.m.

As a carer of two elderly parents both with varying degrees of Alzheimer's, it is truly wonderful to read all these comments and diswcover how may others are struggling on as well. A friend directed me to a really great free bonus book which helped to guide us through what to expect in dealang with this disease. It really helped us, and prepared us for what to expect.
Free bonus book about dealing with Alzheimer's

Iona

October 19, 2010 6:52 p.m.

this is a response to donna re her mom blanking out for an hour or so. my husband blanks out for a day or so by sleeping and unable to arouse him. he may then stay awake for up to a day trying to meander around the house. i know, from caring for alz pts' when working as a nurse that these things can happen. i know from counseling family members, but it all goes away when it is your famiy. we've been married 43 yrs and it hurts when he turns on me. i get angry with him and then angry with myself for getting angry with him. when he does talk with me it is usually nonsensical, but i go to where he is and try to keep him calm by telling him it is under control and i have taken care of the issue. he dosen't remember the conversation 15 min later. if i didn't have my family here i think i would lose my mind by not having anyone to have a conversation with. what do others of you do? do you feel guilty? the worse time is right before dawn when everyone in the house is asleep and i have been so stressed i can't sleep and i look at him and see the loss he has. i pray that when he is &quot;away&quot; in his mind he is in a happy place. the times he has moments of cognition he'll tell me he's sorry for doing this to me and that hurts most of all. sometimes i cry when i know no one is going to catch me and sometimes i won't cry because i am afraid i won't be able to stop.
-donna w

Donna

October 19, 2010 12:18 p.m.

My husband has mod to severe dementia. We are in our early 60s and it seems that life is over. My husband is unable to participate in activities that require interaction with others. He can go from the sweet and loving husband father and grandfather to being physically and verbally abusive. He was a firefighter and I (ironically) a RN specializing in geriatrics and rehab. I have had to retire due to both knees affected with degenerate arthritis that impairs my ability to walk. I need both knees replaced but am hesitent to move ahead because of how my husband will react. He needs frequent redirection. He doesn't sleep very often and has wandered the house turning on the stove in the middle of the night. We are unable to manage on our own and now live with my daughter and her famiy. I don't think it is fair for my grandchildren, ages 16, 13, and 10, to have to grow up with this in their lives on a daily basis. The only time we leave the house is for drs' appointments and that is an ordeal. To compound matters he developed guillian-barre in 2003 that has left him with balance problems so he falls frequently. As with Teresa we did not expect to be spending this time wondering if our family secretly resents the problem we have become. As in most families one chiild out of 4 is able or willing to take us on. In this case it is our youngest daughter who is the middle of the sandwich generation. She and her family are truely unsung heros.
- Donna

Donna

October 9, 2010 7:38 a.m.

My husband has been diagnosed with EOA. He has been an active pastor of a church for over 30 years and now sits in front of the TV all day. He can't mingle with others comfortably like he used to do. I get frustrated in trying to get him out of the house. We live in a very small town with people who already judge us as being outsiders and we feel like we can't tell anyone in town for fear of worse judgement. At 60 years old that is pretty awful. We wanted to retire and have fun traveling. That dream went out the window.

teresa

October 5, 2010 9:37 p.m.

I am deeply touched by all of these comments and I'd like to quote Dr. Butler who wrote in his book on aging:
“Few diseases have had as great a social, economic, and personal impact as Alzheimer’s, the most common form of dementia. Destroying the mind, devastating the family, and making considerable demands upon the health- and social-care systems, it also robs society of important contributors.”
Rovshan M Ismailov, MD MPH PhD
&quot;New Insights into the Mechanisms of Alzheimer's Disease: A Multidisciplinary Approach&quot; Amazon Kindle Book
www.theageing.com

Rovshan

October 4, 2010 12:56 a.m.

My dear wife is in her eleventh year of suffering Alzheimer's disease. For the last year she has been in a care facility and is in the late stage and on hospice. We gave up on all medication a few months ago and actually she has been more responsive. She has recently become as stiff as a board and must be dead lifted on most days. It amazes me that on some days she will stand and even walk some. Don't know how much time she has remaining but she has been a real trooper through all of this. I admire all the caregivers that I have met who give so much of their lives out of love for our spouses, siblings or parents. You are showing God's love to each one.

Donald

October 2, 2010 9:59 a.m.

Recently moved our mother to a memory care unit at a local care center from an assisted care facility. She had been in Assist Living for a little over a year when she had a mild heart attack. Since leaving the hospital her Alzheimer's seems to have gotten worse. She has ups and downs with more downs lately. Keep thinking and praying she will improve somewhat but not seeing it.

Allan

September 27, 2010 4:14 p.m.

has anyone every had this happen before?? My mom is in her last stage of alz. and today all of the sudden she just stopped trying to talk or eat or drink anything and just went into a blank stare and was totaly limp. It lasted a good hour then she just looked at me and i asked her if she wanted some water and she was back to normal (so to speak)

Donna

September 20, 2010 5:10 p.m.

My family (both sides) have a propensity for the big &quot;A&quot;. Since I live in a small town and keep up with my genealogy, I have observed that after about 60 years of age any family member on my father's side of the family who has general asthesia, develops Alzheimer's within a year. I called it the Herndon gene syndrome. More of my father's distant relatives living locally than on my mother's side but she and her mother developed Alzheimer's after undergoing general anesthesia. I suffer the pain rather then risk a battle with the big &quot;A&quot;.

Donald

September 16, 2010 10:46 p.m.

To those recently diagnosed, check Alzheimer's Association website. Read stages of disease progression but remember everyone is different, so it can vary. Read book,&quot;The 36 Hour Day&quot;. Stay safe/healthy: Eat nutritious food. Exercise-from our experience, I'd say to especially focus on maintaining leg strength &amp; balance to prevent falls. Choose your doctor wisely. Ask about drugs &amp; vitamins that aid in fighting this disease. Attend to medical/dental issues. Take your meds as directed. Determine a &quot;support network&quot; - family/friends you trust that are willing/able to assist. My dad, age 88, had symptoms abt 15 years. He's now late stage, but was able to live at home until 4 months ago due to aid from his kids &amp; a part-time caregiver. Plan ahead. Gather important papers &amp; let your family know their location:financial documents, life insurance policies, birth certificate, will, military records, cemetery plots, deeds. Set up payments for regular bills by bank draft. Make home repairs, clear clutter, consider items like a walk-in shower, grab bars, stair rails. Consider moves carefully -living in the same house in the same small town for 50 years really helped my dad in staying oriented when his short term memories faded. Plan ahead for long-term care &amp; how you'll pay for it. Check local facilites &amp; ask others about their experiences there; pay less attention to appearance &amp; more to how the patients look &amp; are treated. God bless &a

Jane

September 8, 2010 1:17 p.m.

My Mom was diagnosed with alzheimers two years ago but looking back I know she has had it longer than that.She lives with my sister 300 miles away and I feel so bad because there is not much I can do being so far away. I bought the. book 36 hour day that was suggested by one of the nurses. I used to be able to hold a conversation with her but now she has a vacant look and I am not sure if she know that it is me when I call. She gets up during the night and wanders, says she wants to go home, takes everything out of her drawers and packs clothes in bags. My sister has a care-taker during the day b/c she can't be left alone. It is getting worse and I don't think there is anything I can do....when I get off the phone with her I just cry.
Thanks for listening,
Susan

susan

September 7, 2010 10:36 p.m.

My mother has been in a memory care unit 2 yrs. I have been shocked how she has declined physically. 2yrs ago she could walk, now she is in a wheelchair and feeble.I can't help but feel guilty that she wouldn't be in this condition if I hadn't put her in a home.

Mary

September 2, 2010 5:51 a.m.

I'm going to ask everyone for a lot of honesty and help. I drive, live alone, have good friends, etc. and have just been told that I have alzheimers. I was pt on the exelon patch. Being of I thought of sound mind, would like to know realisticly how much time others have had with being able to live alone from the time they were told. I really seem to want/need this information so that I can plan things, change things if I should decide I need to. Don't be afraid to tell me, just please tell me the truth. It will help me make decisions while I am able, etc. I hate this for my children. Some are in other states. God bless you and thank you for helping me.

Mildred

August 27, 2010 6:42 p.m.

My Mom (age62) is just now starting Aricept. She hasn't offically been diagnosed as having Alzheimers disease. Although, she doesn't know the date, time, month or year. She drives (very well, carefully, to the speed limit and seems very alert). She hates Doctors and refuses to be seen. She gets hostle towards them and us (three grown daughters).
My Mom used to be so friendly and free spirited. My sisters and I have found that since the 'semi-dianosis', we have felt moments of complete sadness and helplessness. We just want our Mom back. She used to love shopping and going to the casino, dating, laughing, traveling etc. Now she just has a glazed emptiness look in her eyes. We are also wondering if she has the type of AD where it is passed down through genes. Does anyone know more about that? My Mom is the only one amongst her many brothers and sisters or parents that have this 'early on-set'. Could it just be demensia? Please excuse my spelling. I don't know what to do. I called her just now and asked if she wanted to go shopping with me after my work and her response is always &quot;I guess, if you need me&quot;. I don't know. Do any of you live in AZ? I sure wish my Mom could meet someone her age (a man?) and go through this with arms to hold each other. I hate that she is single and facing the beginning of the end so soon. It breaks my heart. I can only imagine what it does to hers. :(

Michelle

August 26, 2010 10:57 a.m.

This is a great blog idea, I hope that through others we can learn more for a cure.
http://www.brittanyhouseactivcare.com

alzheimers care long beach

August 25, 2010 2:28 p.m.

richard--------- and others
my wife was declared a severe alzheimer's case over a year ago----- i have been giving her about 1 oz of turmericpowder/week-------we think that is showing some signs of a slight turn around---------try it --- it is safe, inexpensive and easy to find and to use------google alzheimer's/ tumreic/ucla ------------- there lots of sites for more information-----try it ---what's the risk?

gary hHdfaC

August 20, 2010 9:37 a.m.

Dementia? One day my mother in law is alert - however - somewhat confused. The following day she is almost incoherent. Are drastic swings common in dementia cases?

Ron

August 19, 2010 3:42 p.m.

The Alzheimer Society of Ontario (ASO) is involved in an amazing opportunity through the Kiani Foundation, and with the support from you can help make a huge impact! If ASO gathers enough votes between now and December 31, 2010 in the www.winavote.com contest, $20,000 will be donated to the ASiO Strategic Investment Fund. Please help support the Alzheimer Society of Ontario by going to http://winavote.com/vote.php
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Alzheimers

August 17, 2010 2:11 a.m.

I am 48 and have early onset dementia it took me four years to get diagnosed. I was already 100% disabled a wounded warrior from Afghanistan. It all started following my first heart attack at least that when my wife noticed something was wrong. Since I was so young and a combat vet they said I was depressed or that I had PTSD I knew this was wrong but no one believed us.
We finally found the right doctor and I was given the mini mental state exam and I scored a 22 out of 30. This past month I have felt relief knowing that yes there is something wrong but also the fear of the unknown. I have an 18 year old son what can I tell him I want be here for you when you need me the most. I will never see my grandchildren grow up. I was really looking forward to spoiling grandkids. I did have a great life I have done most everything I wanted to do now I will fight this and I want let it win.

Richard

August 16, 2010 7:36 p.m.

Marie, does your mother take any type of prescribed sleep medication? My mom would wake up countless times a night and scare me to death standing in my doorway. I work full time and the lack of sleep was starting to wear on me. Her doc now has her taking Ambien and she sleeps all night and is rested and relaxed the next day.

Sheri

August 12, 2010 11:21 a.m.

I NEED HELP! My mother-in-law has AD. Our biggest problem is her getting up during the nite and removing feces from her diaper and urinating in bed. Her fluid intake is limited, but still continues to wake up wet and the walls are feces-lined. She is put to bed with dementia &quot;gloves&quot; but manages to get out. It gets tiring to have to strip linens everyday, give her a shower upon waking everyday and washing down walls. Outside of this she is a VERY nice, mild-mannered woman. Any suggestions?

Marie

August 5, 2010 3:25 p.m.

Very informative. Great Blog!!!
For help with your search for an assisted living facility check out silvercensus.com!

Sue

August 2, 2010 8:41 p.m.

My mom has AD and is in a nursing home since breaking her hip in April. She has gone downhill so rapidly---it's hard to fathom. She also picked up &quot;C-Def&quot; during the same time frame. She has been on antibiotics since April and can't seem to get it under control. My sister and I go and feed her all of her meals because it is so difficult to get her to eat. They have her on countless drugs. She yells alot and they would like to control it more. She also acts as if she itches all the time to the point that she wants to tear at her clothes. This is all so painful---watching her have apparent psychotic breaks and seeing her so upset. The neurologist said she is in the later stage---how long can this go on???

Julie

August 2, 2010 1:37 p.m.

My mother was diagnosed 7 years ago after years of delay by me and my siblings. She was still able to mask her symptoms and the family was in gross denial. At that stage she manifested the usual early warning signs of a changed personality by being combative, sarcastic and unwilling to see the doctor. Since then she has become yes more forgetful and weak but calmer and happier.
All I can say to those whose loved ones may be at the beginning stages is that you and your family can get expert information and support on the Alzheimer's hot line and at support groups. Learning the stages of the disease and how best to communicate with our loved one is key to everyone's survival and peace.
I can't stress enough how helpful knowledge is and how harmful denial is for the sufferer and the family. My mother is not the problem actually--it's the family's refusal to accept the reality and to acknowledge my mother's existence, as reduced as it may be. I can deal with my mother's long, excruciatingly slow decline over 13 years but not the family attitudes and actions. Education, acceptance and outreach for support will help you through.

kfl

August 2, 2010 10:27 a.m.

My Mom has been getting increasingly more forgetful and she is starting to act angry and agitated especially at my Dad. My brothers and I got her to agree to go see a doctor. She thinks we are all crazy but she is going. The appointment is not until August 11th and my Dad called this morning and asked me how he is suppose to handle her &quot;forgetful&quot; episodes. I told him that I didn't know but I would find out and in the mean time my personal, non-professional, opionion was that he should tactfully point out that she is remembering incorrectly. She gets very upset with him but I don't think he should lie to her. What is the right way to handle her when she remembers one way but that is not the way it happened?

Donna

July 30, 2010 4:32 a.m.

My mom was experiencing severe paranoia and my husband and I had to do an involuntary admission into a psychiatric geriatric unit of a leading hospital. She was admitted for 1 month and it has been very difficult for me as an only child. She has been put on risperidone and is now less anxious - but she is forgettful. It makes me feel sad that the mom that I grew up with is no longer around. I lost my dad to a brain tumor 15 years ago which in some ways seemed easier than an illness of dementia. I feel strongly about keeping her home in the environment she is used to - although she resists caregivers because of her independent personality. At the hospitals suggestion, I went to visit dementia facilities - but I just cannot bring myself to admit her to a place like that. I found 2 great caregivers and trying to help her not be so resistant to having someone in the home. I have help off on evening care because she sleeps thru the night at this point. I find it very soothing to read the attached blogs- to know I am not alone. I keep up the faith - hoping her illness stabilizes...and the medication slows down some of the progression. She appears to have cataracts..I am nervous to have her go thru this surgery at this point - does anyone have any thoughts..Fortunately, my husband and 2 teenage children have been great, but I worry that I am not my normal joyful self- so I try to hide my feelings. To all of you in this blog- you are in my prayers.

Karen

July 29, 2010 4:11 p.m.

My husband 79 yrs old wants to have a shoulder replacement done in Aug. I have read some info in chat rooms that it can cause problems with AD??
Has anyone had bad experiences with surgery?

Mae

July 27, 2010 12:31 p.m.

Great Blog!!
For help with your search for an assisted living facility check out silvercensus.com!

Sue Bailey

July 23, 2010 8:57 p.m.

My Dad has dementia &amp; Alzheimer's, this is one heck of a journey. He is a wonderful man and we are trying to keep him at home as long as we can. We have care coming in a couple of nights a week due to his not sleeping at night and someone comes in a few hours two days a week, but it is not enough and so expensive . Any sleeping suggestions would be appreciated.

Charlotte

July 23, 2010 8:31 p.m.

I would like to speak for the working, walking and talking people with dementia. I am considered within the acceptable area. This means I can forget how to do things that I have done all my life but the professionals don't consider it a problem. I have to put up with ridicule at work because I can't do things as well or I forget how to do them, I occasionally get lost when driving, I forget my co-workers names (but funny enough not their faces) and I stopped dating because I would forget my boyfriend's family and friends names. There are many, many of us out there. And there is nothing that can be done.

Ann

July 23, 2010 11:25 a.m.

Thank you for your invaluable information.

Terry

July 23, 2010 8:55 a.m.

I just found this blog today, Thank -you! The number of people with similar experiences is staggering. I journal everyday to help keep my prospective on life and deal with my mother's alzheimer's. Recently a friend suggested that I do this publicly so that family and friends can keep up on mom and I have a way to share my experience with others. I just started a blog,http://memomandalzheimers.blogspot.com/ this week...we'll see whether it helps or not. I wish I had gotten Sandi's advice in 2004. I took a family leave when mom had breast cancer and could no longer care for herself because of her alzheimer's. Had I known about medicade I would have definitly applied. Caring for someone I love and lossing my income at the same was very stressful! I had to put mom in assisted living after 9 months, not because I wanted to but because financially I had to. Hind sight is always 20/20. Keep the comments coming someone will find what you have to say very helpful.

Mary Ellen

July 18, 2010 7:07 p.m.

Sue- I don't know what state u live in, but I live in Utah. And here, even tho I never took advantage of it, I was told that u can apply 4 medicaid 4 your husband. Telling them u need financial help,and they will pay u 2 stay home and care 4 him 24-7.that includes his meds,(free)and any supplies u need. They do this because it's cheaper 4 the state 2 pay a family member. (the last I heard, $2,500.00 amonth)- than it is 2 pay 4 their care in a nursing home.U should check with Department of family services. I'm sure it applies in most states.But they don't advertise it,I noticed. So a lot of ppl miss out and struggle thru it themselves. Good luck 2 u and yours.

Sandi

July 18, 2010 6:46 p.m.

Pam- I feel so sad 4 u,having 2 c your dad in such pain. Over, and over. I know exactly how u feel.I'm not a religious person,so I don't pray, but I wish the best 4 u, always.And 4 anyone else that's having 2 go thru this horrible ordeal.

Sandi

July 18, 2010 6:33 p.m.

4 Angela Lunde-and whoever else I need 2 thank! If u r the one responsible 4 starting this wonderful, and informative blog, thank u so much. Even tho my experience is over, it's so nice 2 be able 2 read the stories so many ppl had, the same as mine. it just makes me feel better, knowing I wasn't a bad person 4 feeling the way I did at certain times when things got so stressful I just wanted 2 give up./

Sandi

July 18, 2010 6:05 p.m.

This is such an interesting subject, and all of your stories are so interesting. All so different, but also the same.Especially since I have 1st -hand knowledge and experience.when I was going thru this with my husband, and my mom,at the same time, I felt like I was all alone. My husband passed last year, and my mom 5 yrs. ago. But everything is still so fresh in my mind. I believe that the care-giver goes thru much more than the patient. Because we love them so much,we put up with anything trying 2 help. And in the end,I'm glad I went thru it.It's made me amuch better person.Because I know that I did the best I could,whether they realized it, or not. Love, respect,and good luck I'm hopeing 4 all of u. You're all angels!!

Sandi

July 18, 2010 5:44 p.m.

4 S.Baker- I just read your blog, and almost cried 4 u. I went thru almost the same thing with my mom. It became so difficult 2 take care of her, I tried bout 3 different n.homes. And when I would go back 2 c her the next day, she would cry 4 me 2 take her home.I already had my husband of 42 yrs. at hme with dementia, stroke, amputated leg,totally bed-ridden,and totally incontinent. Who, was easier 2 take care of, than she was. She thought the nurses were plotting 2 murder her and put her in a body bag.So of course, I had 2 take her back home each time,and try again.because I felt so guilty. The last nursing home I took her 2, she developed pnuemonia, and was put in intensive care. Of course, me being the only child interested, and the only one with power of atty, I also had 2 make the decision on life support.Eventually, after almost 3 weeks, I had it removed, and my sweet mother passed away in approx. 15 mins. I'm just writing this 2 let u know, that even tho it seemed impossible then, if I had 2 do it over, I would keep her home with me,and put up with it all, if I could just have her back. And 4 all the ppl on here who's blogs I've read about them 4getting who u R, I want 2 say I also had a lot of that. She told her doctor I had stolen all her money, and that my son threatened 2 kill her, if she didn't shut- up. Which he would never have done.&quot;Also that I was just a little b*tch, who will be in a lot of trouble when her daughter gets here&quot;.I wish u the best of l

Sandi

July 16, 2010 4:37 p.m.

My dad, 93 with Alzheimer's for the past 10 years is a former airline pilot. I live 3 hours away from him and have visited him almost once a week since my mom passed 5 years ago. I have a blog, pattykj.wordpress.com where I recount some of my visits with him. I find that each time I visit with him I must again come to terms with his disease. I've learned to be grateful for the moments I have with him and also my memories of him as an amazing father. I hope that you will find a companion in my blog and that it will help you come to the terms of your circumstances as well.

Patty

July 15, 2010 2:30 p.m.

My husband, 68, was diagnosed with Alzheimer's last week. We are still in shock. We have no idea what the future holds, and what causes Alzheimer's. I hope I can find comfort from this blog, because right now fear is overwhelming. Can someone give me a time frame from point of diagnosis to incapacity...5 years, less? I would really appreciate any answers and any support. Thank you.

Carolyn

July 8, 2010 8:59 p.m.

I've been noticing a pattern among people destined to develop Alzheimer's Disease: They are insomniacs.
In researching this I found an article in &quot;The Scientist&quot; that cited a University of Washington study: &quot;Our results are preliminary evidence that sleep abnormalities midlife could put people at risk of Alzheimer's disease later,&quot; said David Holtzman, a coauthor of the study and a neurologist at the Washington University School of Medicine. The group found that the concentration of amyloid-beta, a peptide whose build-up is linked to the onset of the disease, significantly increases during periods of sleep deprivation.&quot;
My thought is that early Alzheimer's may be the PRECIPITATOR as well as the result of sleeplessness. I wonder if lesions in the brain effect the sleep center causing insomnia and then, with too little sleep, the brain suffers for lack of &quot;re-charging&quot;. I hope both aspects -- that Alzheimer's may be the cause and the result -- will be investigated.

Alzheimer's and Insomnia

July 1, 2010 8:58 p.m.

My mother was formaly diagnosed with vascular and Alzhemier's dementia this year but has had signs for about 5 years. Her diagnosis was confirmed with a t CT. MRI and MRA of her brain. She is happy in the assisted living place where she moved last September. It is really hard for me to deal with a diagnosis that no one can tell me anything about how to plan for her future, how fast this disease progresses, what are significant events - i.e she has had miagrains about 20 out of the last 30 days. There is nothing else neurologically seen. It is so hard to deal with her asking me the same questions 4 times in a conversation that last about 6 minutes. I feel so guilty when I find that at that point I cut my conversation short. It is difficult to identify the stage she is in. I am thankful that she is happy and usually pleasant but am so lost and frustated that this is a medial condition that I cannot get much factual information on - if anyone has any suggestions I would so much appreciate it. Thanks

becky

June 24, 2010 2:41 p.m.

My mother has been diagnosed this year, but has been having problems for the last couple. She has gotten in the habit of spending the night at my brother or my house. She doesn't want to us to stay with her; it has to be her staying with us. She won't move into assistance living. I don't think that moving from house to house is good for her memory, but I'm at a lost. She won't listen.

Carol

June 16, 2010 12:14 a.m.

My dad was officially diagnosed last year. We moved him to be closer to me in Princeton, NJ. This disease breaks my heart a little more every time we see him. It's my personal mission to make him smile or laugh every time we are together. It's too easy to go the serious, we're screwed route. My main issue is the place he's in. The Alzheimer's wing is like the island of forgotten souls. There is no life there. People sit in a circle, staring into space. We bring him to our house every weekend for family time and good food, but I feel like he's slipping away a little more with every visit. anyone else experiencing this?

ashley

June 12, 2010 4:09 p.m.

I am facing a dilemma. My husband is completely dependant on me. This week my eye doctor told me I needed to get my cataracts removed. I know it it day surgery - twice - but that also for a week after each surgery you cannot lift heavy things or bend over, etc. I do not want to put my husband at risk, as his doctor said that we need to keep everything as routine and without changes as possible. He isn't even allowed to travel. He is is a wheelchair and needs help with dressing, toileting etc. I plan to put off my surgery as long as possible, as I have nobody that I can ask to take my place as his caregiver. I really don't know what to do. I can't afford to hire caregivers for two separate weeks.
Ruth

Ruth

June 6, 2010 10:31 p.m.

I want to know how any of your parents were formally diagnosed. My mother's visit to a neurologist as a result of shaking/tremors led me to ask about Dementia/Alzheimer's. This neurologist told me that the disease is only diagnosed once the patient is deceased. I am now inquiring about in-home, adult day care, and memory care facilities to pre-plan future care. One of the social workers at one of these facilities mentioned a PET scan -- have any of you any experience/information to share with me about this diagnosis procedure?

April

June 1, 2010 4:50 p.m.

I forgot to mention in my last post that my mom is only 69 years old, a hospice nurse and very active in her community. That's why I am so very concerned. Thanks.

Denise

June 1, 2010 4:47 p.m.

Hello, I am hoping someone out there can give me some direction regarding my mom. This past weekend we were having a discussion about our families past medical history and I talked about my grandmother's(my mothers mom) stroke to my mom. She adamently denied that my grandmother ever had a stroke (this was about 15 years ago) and claimed the reason grandma was in the nursing home was because of severe osteoperosis. She also does not remember my grandmother not being able to speak or feed herself. I am not sure what to do. My mom is fairly healthy, a little over weight and has high blood pressure and cholesteral, but nothing else notable. I know that short term memory loss is one of the symptoms, but I don't think you would call this &quot;short term&quot; since it happened so many years ago. She does struggle at times with word finding also, but so do I and it doesn't alarm me as much as this latest development. If anyone has any thoughts or could help me to find out more of what I need to do next I would really appreciate it. Thanks!

Denise

May 31, 2010 7:31 p.m.

Sonya, I can't believe this is happening to you! I'ts ridiculous. I believe my mom had alzheimers {mlild } for about 10 years. She didn't see well, and I lived next door to help. We didn't notice as much. A couple times, she imagined simething totally bizarre! Yes, symptoms are HALLUCINATIONS. she said someone came in the house and stole the grandkids valentines. To top it off she SAW their footprints in the snow! She would say she had a bleeding disorder, so refused to take her pills. I have a friend whose Father used to call the police on his mother.not sure what he said. Once my mom thought my son was in an accident, and was hanging around on the porch and wouldn't go in. would not believe he was ok {couldn't get ahold of him} and SAW the wrecked car in the yard. I know you will find your stories out there good luck

Jan

May 25, 2010 3:12 p.m.

I am sorry for all of the things you all are going through with your families. I am looking for experiences involving exaggerated stories and Alzheimer's. I went to a therapist to vent. What I am now facing is felony charges because, she said I threatened to kill her. I was shocked when I found that I was being charged for this. I am not a violent person and never threatened her. I have been thinking that she perhaps has Alzheimer's and, for my freedom's sake, am looking for stories of great exaggeration to show my attorney. If you can help me with this I would greatly appreciate it. Again, I am so sorry for you struggles. May God be with you.

Sonja

May 24, 2010 6:33 p.m.

My Mom was formally diagnosed about a year ago. She originally resisted medication, but eventually agreed to try Aricept and another med issued through a dermal patch (sorry I'm not sure of the name, my Dad is her primary care giver). I went to visit them on Sunday - a long (5 hour) and pretty pleasant visit. My brother got a call from her today when my Dad stepped briefly to run an errand (she doesn't like to leave the house much any more). She told my brother she really didn't understand how to use the phone and that she thought she was in the kitchen, but wasn't sure. It really alarmed me that she seemed so well yesterday and so unwell today. I've received several strange phone calls from her as well. One last week saying she hadn't seen or heard from me for weeks (I had in fact been there 2 days before). I told her I would visit on Saturday and called on Thursday to remind her that I would be there on Saturday. I got a call at work on Friday morning. She told me that she and my Dad were in disagreement about when I was coming. I reiterated that I would be there tomorrow (Saturday) and she was completely surprised. Unfortunately while I was on route my daughter called and told me she had to go to the emergency room and needed me to come and watch my grandchildren for her. I went to visit the folks on Sunday instead. Anyway my questions are - Is this typical and what can I do to help my Dad? I live an hour away and work full time.

susan

May 23, 2010 1:20 p.m.

Seroquel is the target of successful lawsuits by trial lawyers who are making a mint as they have somehow related it to the cause of death with people with dementia who are dying anyway. To these lawyers it is of no concern that the end result of their actions are people who will now have to die miserably instead of groggy. It's the money. I am surprised that there are some still able to get Seroquel for the elderly. It may have it's drawbacks but for some it is definitely worth the risk. That doesn't matter anymore with my Mom and either there is nothing or they are afraid to give her anything to replace it. Between her and her sister, I've been dealing with this since at least 1980. How much longer I couldn't say. It is very different when the brain goes first. It's the part that tells you if somethings wrong with your body but it can only give out the brief hints when somethings wrong with it. Then they're quickly gone.

Bob

May 2, 2010 9:23 p.m.

Thanks for the advice Kathy. My husband had the test on an outpatient basis. Both my family doctor and the urologist thought it was necessary. So far no results. My question was : What will you do about it if you think it is necessary to treat him? From everything I know whatever treatment they would use would be catastrophic - but if the cancer goes into the bone he would suffer greatly. I felt with the two doctors that if I refused the scan they would say that he wasn''t getting the care he needed.

Ruth

May 1, 2010 5:59 p.m.

We have just 5 days ago put our father into a complex care unit within a care home. We researched and this facility came highly recommended. However, they are telling us that Dad will settle much better if we do not visit him for a while. The option is ours, and we of course want to do what is best for him (which is not necessarily what is best for us...we would be there every day).
We have been visiting Dad and taking him out, and Dad has been very distressed for the past 2 days. The nursing team at the care home has reassured us that if we stop going for a while it will help him. Has anyone else heard of this? We are feeling so guilty if we don't go to to see him, but don't want to set him back or him worse either. We just do not know what is best.
Also, how long have you found it takes for your loved one to settle into a new home?
Thank you to anyone who can offer advise or comments on their own experience.

Jody

April 28, 2010 10:27 a.m.

To Eileen - Your mom is acting the way she is because of the disease. This is the disease talking, not your mom. Try adding some humor to the situation.
When she insults you, say agreeing with her.....like &quot;your right mom, I never could cook eggs as well as you&quot; (or whatever is appropriate for the conversation). She's frustrated; she knows something is wrong with her and she needs to feel comfort and love. Smile at her more, give her loving touches/hugs.
Also, try distrations. Change the subject to something she likes (or use to like).

Kathy

April 28, 2010 10:19 a.m.

To Ruth: How important is it to you to know where your husband is with his Prostate cancer. Is the scan done as an outpatient procedure or is he admitted to a hospital and anesthesia administered? If the latter, then I tend to think there will be a downturn.

Kathy

April 20, 2010 4:21 p.m.

Why do doctors prescribe Seroquel for dementia patients when the maker of the drug itself says it is not recommended for elderly dementia patiens? My mother has dementia and was prescribed Seroquel for hallucinations. She is now in assisted living/memory care. The nurse there called her doctor (without consulting me) and had the dose lowered because she was falling asleep in her dinner. If there are other medications that can help with hallucinations, why Seroquel when the manufacturer warns against it?

Peg

April 18, 2010 10:18 p.m.

My 84yr.old mother is in the moderate-severe stage of Alzheimers, we have to move her from assisted living to a memory care unit. She lives in the metro Washington DC area..does anyone know of a blog site or a web site where family members rate and talk about quality of care in specific care facilities? We are trying to be very careful about quality and would love some guidance and advice..thanks, Carol

Carol

April 16, 2010 10:06 p.m.

My husband was diagnosed with AD about two years ago. He also has peripheral neuropathy and prostate cancer. I find that none of my family understand how much stress there is in caregiving. It is not only physical stress, but worse is the emotional stress of seeing your loved one go down under these diseases. I find that when I go to bed at night I am exhausted but as soon as I lay my head on the pillow my mind starts working about what is going on, what the future will mean. I do not want to put him in long term care but at the age of 77 myself I wonder if I will be able to handle it. About three weeks ago he had a cold and suddenly lost his ability to walk. Now he is in a wheelchair which I find very tiring. I am so worried now as his urologist wants to do a scan using radioactive material to see where he is at with his prostate cancer. Will this trigger another downturn in his general physical state? Does anyone have an answer?

Ruth

April 16, 2010 6:50 a.m.

to JC. The way I finally got my husband to go after trying for two years is that I told him I wanted to go to the neurologist to be tested for Alzheimer's because I thought I had it and I wished he would go to so we could finally say he doesn't have it. Of course when we went he was diagnosed with it and I was told I was fine. I don't necessarily agree that I am fine but the stress and lack of sleep I experience explains most of my dementia.

Janet

April 14, 2010 12:53 p.m.

Is there any significant Alz work done in SouthAmerica anyone would know? Im curious,cant find much

Thank you for creating this my husband has alz diagnosed offically at 65 but now we realize how long he did have it. I have a blog I would love to share with others but not sure how to get it out there. Is there a forum where we can post links to our blogs? This is a devestating diease. We have two daughters 16 and 18 at diagnosis of their Dad it has been very had to handle this pain.

Sheri

March 25, 2010 6:44 p.m.

My life for the last for the last 10 months has spun completely out of control. My husband is in the Army and had been deployed to Iraq. When he came home in January 2009 he took leave for a month. Our daughter and I had gone back home while he was deployed so, that's where he came to spend his leave. When his leave ended he returned to where we were then stationed and was prepairing for us to go to a new duty station. Though we were a long distance away from each other I could tell then that something wasn't right. He was having a hard time remembering the things that he needed to do and just trying to keep things organized.
Long story short (especially since I only have so much space) my husband, who is only 40 yro.) has Early Onset Alzheimer's.
From what I've been told his father, his father's sister, and his father's father all had it to. Though, back in the 60's and 70's it wasn't talked about nor was there treatment available. All we knew was that my husband's father's family had some kind of brain degenerating disorder. We never thought anything of it. That is until my husband started showing signs of too.
Needless to say, I'm tired. I know that my husband is fighting a battle, but so am I. I'm trying to care for our 11 yro. daughter, take care of the house, take care of the bills, and care for my husband. He doesn't understand that the intimacy we once had for me is gone. He has mood swings, argues with our daughter, and throws tantrums, UGH

Alicia

March 16, 2010 3:22 a.m.

I am currently taking a graduate course on social networking and one of my assignments is to contact a professional blogger to learn 5 tips of good blogging. My father is suffering from Alzheimer's and I found this site to be very useful. Your help is greatly appreciated. Thanks

Matt

March 14, 2010 9:36 p.m.

My father has Alzheimer's and is not sleeping well. We have asked his Dr. for something to help him sleep and he prescribes Xanaz or Seroquel (anti depression drugs) not sleep drugs. Is there a reason for this?

Bob

February 22, 2010 5:31 p.m.

I am having a very difficult time taken care of my mother. She is very insulting and does not appreciate any of her children. She is extremely unhappy with her life. There is nothing we can do to make her happy. Psychologically we are all a mess. this what alzheimers/dementia is HELP!! Any suggestions...

Eileen

February 15, 2010 7:15 a.m.

My husband who I loved dearly died. I was in deep depression for a long time. During this time, my children had me checked for Alzheimer's. The Doctor said I had it and I've been trying to fight that diagnoses since. No one will listen nor give me another test, they just want to believe they are right. What can I do?

Agnes

February 10, 2010 7:19 p.m.

This is my first blog! I have Alzheimers Disease. I am a retired teacher, and was teaching at the Community College part time, when I found out I had Alzheimers Disease. I decided not to teach in consideration to my students. At first I was at a loss, after teaching 45 years, but have found many ways to be useful and enjoy life. I want to share that the most helpful tool I found is walking and doing crossovers with my arms. I make the shape of a horizontal &quot;lazy&quot; 8 with my right hand and then my left hand, and then both hands.
My son said he has seen a big improvement in my ability to remember. I also document everything. I write in a notebook everyevent, idea during the day. Then I write it in my daily journal on my computer. It really makes a difference in my ability to recall.

Beth

February 1, 2010 7:20 a.m.

Here is a link to more information about the genetics of Alzheimer s Disease that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: http://www.accessdna.com/condition/Alzheimer_s_Disease/31. There is also a number listed for anyone who wants to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA

shashank

January 29, 2010 9:30 p.m.

I was taking care of an 85 year old woman who has alzheimers illness. I was hired by her husband who seemed to like me. The job was going well. My role/task was light housekeeping duties along with general care for his wife. She liked to stay in bed until 2--so most of the time she slept...but sometimes she would like to talk. I liked the job alot--and felt things were going well-as my boss had mentioned he had no problems with me. However all of a sudden he got very mad at me--the next thing I knew his wife got angry at me too! When nothing in my behaviour had changed. I realized that the wife--decided that she didn't like me (in her 5th year of the illness) and was saying nasty things to her husband--in order to get him to stay at home. Is this normal for the illness---All of a sudden I watched her husband go from laughing and joking with me--to completely shutting down. And eventually refusing to even talk to me--...I no longer work that job---but would like to know if that is normal with the illness?? Was I caught up in some sort of emotional black mail between the couple with out even realizing it?

Megan

January 23, 2010 10:35 a.m.

My mother in law obsessively tries to eat ice cream. She did not even like ice cream very much before Alz. Does anyone know why this occurs and have any tips on how to calm the obsession.

shari

January 9, 2010 5:22 p.m.

Mom has dementia. She has two care providers a husband and a daughter (me). I believe diet has dramatically improved my mother mentally. (You are what you eat.) Besides a daily vitamin &amp; mineral-added B-12 and D. Has there been any additional reserach on these vitamins? Before I added these to her diet she was checked by her dr...low potassium &amp; sodium were her problems-everything else was okay. We make certain she eats fruit, veggies and cottage cheese daily. We have good food available for her to graze on at table she walks by. (Her previous weight loss was frightening.) Mom is also on Numenda a great benefit to her. She had forgotten how to tell time - now she can tell time again and is gaining interest in other things again.

Jan

January 9, 2010 10:58 a.m.

My mother has been experiencing issues with paranoia and rage for several years, and has begun to exhibit other signs of mistrust (Such as carrying valuables in her handbag when she leaves home). She is 62 years old, and just called me to accuse me of having one of my aunts &quot;interrogate her&quot; as to what she's doing today. She is convinced that her family is trying to make her think she is crazy. How can we seek help for her when her symptoms continue to point toward dementia? I feel that our window for getting viable treatment for her is closing rapidly as these instances are on the rise. Any advise would be much appreciated. Thanks!

Jen

January 9, 2010 9:12 a.m.

I cannot find any indication where Dementia is a fluctuating condition e.g. in-and-out of it to a dergree
in the mental capacity of a patient. Please, someone help me to find that answer. Thank you in advance.

Harald

January 7, 2010 2:00 a.m.

I'm not sure how to do this blogging but I was searching for information and encouragement tonight and found this site. I'd like to reply to Donna as we were at your stage about 4 1/2 years ago. My husband too was a master at joking so no one was sure about his problem, but I knew. I insisted the doctor refer us to a psychiatrist who diagnosed him. He had over three good years on medication and now has been in hospital since April. Before he left I thought I was out of my mind with the craziness of it all. You begin to wonder about your own mind. That's why it's so important to get help and find a support group soon. You've not only lost your friend/advisor/confidant but you are living in the toughest of mental situations. If you have to see his doctor on your own you should do it. It doesn't take long in a stressful situation like that before you wear down and start making poor decisions yourself. I miss my old husband with the good mind terribly and I feel guilty that he's gone, but I know I had no choice. Now when I visit him it's happy and not stressful, and he doesn't even know where he is so that's a blessing. My other advice is to not think too far ahead and start worrying about the future. Things do fall into place exactly when you need them. Enjoy your husband while he's with you and be thankful for the things he can still do. Don't be mad at him because he is a victim too.

Linda

January 5, 2010 12:32 p.m.

Please excuse typo. I mean to say &quot;that although I am not related to your mom, dad, spouse, etc., it doesn't mean that I, and others like me don't care to the depths of our beings.

K. Lynne

January 5, 2010 12:29 p.m.

Caring for individuals with Dementia starts with love. I am a professional caregiver. Working with 23 individuals with Alzheimer's, Parkinson's, Frontotemporal and several other illnesses can be extremely challenging. Family members have a terrible load to bear and when they can no longer shoulder this, professionals are and must be there to share the 'burden'. I don't like that word, but never forget that just because I don't care for your relative, I don't care, work to exhaustion at times and worry when I am not there.

K.Lynne

December 29, 2009 6:19 p.m.

My husband has had Alheimer's for about two years. It is so sad that he would not hear of himself having it that he would not go to the doctor. When I finally got him to go he still denied it and would not take the meds to help him, he was in complete denial at that time. Had a hard time getting a Doctor to refer him to a neurologist. We lost several years if only a Dr would have refered him, makes you wonder about Dr. as good as they are whey they refuse to refer people when it is so obvious.

Pat

December 29, 2009 9:13 a.m.

Good Morning,
This is indeed a very difficult and terrible disease. When my sister in law decided she could not take care of my father in law anymore so we quit our jobs and moved in with dad to take care of him. It was very difficult for my husband when his dad couldn't remember his name. It was hard when he would ask to go home and we were in his home. We went thorugh all the stages of Alzheimer's with him. When he went through the mean stage my husband threatened me that he was going to put him in a nursing home, but I was able to care for him while he went through that stage and we were lucky enough to keep him with us until his death. To me the most important thing to remember about Alzheimer's is MOMENTS. I would keep in my heart the good moments of the day, while he would go through his sundowners later in the day. I do have 3 suggestions: 1) find a good support group. You can go on line to Alzheimer's Association and find your state and city to find a support group.
2) Respite care is very important. If you don't take care of your self you will not be able to take care of your loved on. 3) Hospice is very important when they are at the end of days. They are very supportive for the caregiver and comfort for the loved one being cared for. Please check out www.mariefostino.com Just remember that to the world you maybe one person but to one person you may be their world.

Marie

December 28, 2009 4:56 p.m.

I am in a very difficult situation. I need advise and opinions. While doctors suspect early Alzheimer's in my husband (63), no one will make a definitive diagnosis. He is a great confabulator to cover when he forgets and makes dismissive jokes to cover. I see significant gaps in memory, but not always. I witness things like mistaking his daughters who are 16 years apart, getting lost on vacation when he used to be a great navigator, and here's the best one: he bought a motorcycle and forgot. He was a heavy drinker for years, but hasn't touched any for over 10 years since it almost killed him. I can deal with a definitive illness, but this vagueness and unknown is destroying our marriage. I blame him for not paying attention even though I KNOW I have his attention. It feels like Groundhog Day everyday. What do I do?

Donna

December 20, 2009 10:55 p.m.

My husband was diagnosed with Alzheimer's in September of this year, he is 61 years old. He is unable to work because of the short term memory and because he worked using a computer, the computations are too much for him. He does not remember to take his medication, so I am trying to help. I work and I am not use to being a caretaker. His medications he takes twice a day and if I get busy and forget, he only gets it once a day. I feel terrible that I am doing such a poor job. I picked up the medication packets from the store that have AM and PM on it and hopefully this will work better for us both. I am calling tomorrow to sign up for a support group. Any comments that can help a beginner care giver are welcome.

Rose

December 18, 2009 10:16 p.m.

My husband had an MRI and damage is seen in the hypothalamus with gliosis. He doesn't exhibit typical symptoms of Alzheimer's, but he still has some short-term memory loss. He gets his directions confused as well as searching for the &quot;right&quot; word sometimes, but at 83 yrs. he is doing really well. Any thoughts?

Ferris

December 15, 2009 10:23 a.m.

My husband of 43 years was diagnosed with early onset Alzheimers about 8 years ago at 52. His mother also had the disease and lingered for 20 years. I watched my husband's sisters and brother care for my mother-in-law then unfortunately, with growing families of their own, &quot;mom&quot; was put in a nursing home where she lived out her life, another 8 years or so. She did not recognize any of us. Since my husband and I lived out of state, the few times we were able to visit, I did see a flash of recognition when she looked at my husband, then passed into a stare almost immediately afterward.
I am scared. WE have moved in with our daughter and her husband and my grandchildren ages 11 and 10. I thank my daughter and her husband and my grandchildren for their kindness, love and support. I see a difference in my husband that living in this busy household may prolong the disease or at least keep him engaged for awhile. More so than if we were in our own home just the two of us.
It is a trade off at this point how to manage and did we make the right decision, etc. Our son, still lives in our previous city, an hour and a half away, but we are separated by a greater distance now. It is h ard for he and is family to live with what is happening and being not so close anymore.
I guess I miss the physical closeness my husband and I shared, but am grateful for each day we wake up, together and he can still remember who I am.

pam

December 12, 2009 2:25 a.m.

I wrote to Effie and Brenda below but forgot my name. (NOT on purpose...sorry, all.) I wish you all the best on your hard journeys as you go through this horrible disease. I hope you have all the help and support you need!

Sharon

December 12, 2009 2:20 a.m.

Effie, the difference between someone with Alzheimer's and another person who forgets is that the person without will remember the embarrassing incident (your daughter's name) but the Alzheimer's victim will not. You may want to look at your nutrition or go to the doctor. No need to be embarrassed...get the help.
Brenda, you may want to check the laws in your area if you suspect your father is being drugged for the wrong reasons. That is restraint and may be abuse.
I wrote about my sadness and experience as my mother's disease progressed. We lost her in 2004. http://www.associatedcontent.com/article/2040865/diagnosisalzheimers.html?cat=72 (copy and paste into search to read)

Anonymous

November 30, 2009 2:24 a.m.

I am so confused right now. My Dad is in the final stages of Alzheimers. He is in an Alzheimer's Special Care Facility. 2 weeks ago his condition had deteriorated so drastically that I took him to a doctor (ther than the one who sees him there). He was extremely dehydrated, mal=nourished (lost 19 pounds), and could not speak. He was so medicated he could hardly hold his head up. He had pressure sores all over his body. After 9 days in the hospital, he was talking better, laughing, sitting up, better color, and had gained some weight. For the first two days back he was great! Playing ball, smiling, eating. Then when I got there on Thanksgiving he was near comatose. Could barely sit and leaning over to one side in his wheelchair. Unresponsive....obviously drugged! Was experiencing choking again when we tried to feed him....too sleepy to swallow. After 4 days he still can't sit up straight...still seems drugged and can barely eat. My questions brought answers that the the doctor's office (the one who comes to visit him) had made an error and doubled his dosage of Seroquil. I am now terrified that he will never get back to where he was prior to that. Do these places drug these poor people because they are too difficult to deal with????? I am sooo angry right now!!!

Brenda

November 22, 2009 10:37 a.m.

why would u take something that u have no need for?
everyone i have taken care of on exelon was rude, mean and violent to the point now i will not care for anyone on it
I have been a caregiver for over 20 years now.
I was so affraid to take my mother in law off the stuff
untill i did a lot of research. well all it says if you miss several doses to start it back up gradualy
I was so amazed at the improvement afterwards not talking
troble walking all that disapeared overnight!
I have no regrets and you will have to decide and make your own decision.
Good Luck as all this can be very nerve racking
Don't let it get to you what will be will be.
So we just have to make the best of it
Try StJohnswart for the mood that is what i used for MIL

Sue

November 20, 2009 2:34 p.m.

My husband was diagnosed a couple of years ago with alzheimers but recently the neurologist told us he doesn't have it, but to continue taking Exelon patch. But there is something wrong with him that has never been addressed. He is beginning to act out in restaurants over pricing and also at Walmart he quacked like a duck at an immigrant who was speaking spanish on his cell phone. He constantly is arguing politics, especially with our sons. Please give me some help here. Thanks

Marilyn

November 13, 2009 8:48 a.m.

There is a song called &quot;Remember Me&quot; about the relationship between a grandson and his grandmother who becomes afflicted with Alzheimer's. Very beautiful, encouraging and powerful.
www.myspace.com/akrehbiel
Thank you for your Alzheimer's advocacy!
-Allen

ALLEN

November 8, 2009 10:09 p.m.

Hi...
To everyone who has a loved one suffering from Alzheimers: I started a blog for those who have a loved one suffering from AD. This blog is mean to be a posting of my personal experiences in being the primary caregiver for my mother who was diagnosed with AD about 5 years ago. I want to share my experiences with others so that they can read and know someone understands the everyday struggles the caregiver and family goes through. When we found out my mother had AD, we researched all the websites and talked with the professionals, but very few of these prepared us for what lay ahead. In fact, looking back, I realize now how completely unprepared we were for AD and how it was going to affect not only the life of our mother, but also our lives. So many aspects of this horrible disease are not known. With this blog, I hope to share all of our experiences and have others respond and discuss their experiences. It's so important for us to share and support each other.
http://alzsupporthome.blogspot.com

Carol

November 2, 2009 7:57 p.m.

To Barb (June 29) - instead of zoloft, lexapro might help with the anxiety.
My sister, 59, for the last few months, forgets many important things, such as what hospital she had her babies at and she forgot that our mother passed away this year in March. She seems very confused during our conversations. Our grandmother went &quot;senile&quot; and would go to other people's houses thinking it was hers, etc. My sister's husband has asked her to go see a doctor and I have too, but she refuses. She gets angry. Does it would like she has AD? How can we get her medical care?

Sandy

October 30, 2009 4:05 p.m.

Reply to Brenda-
Yes, we have gone through Pat asking to die, begging to die. I think it is part of the disease because if I ask her what is wrong she sas nothing and doesn't even realize she is doing it.

Chris

October 28, 2009 8:47 a.m.

Can I suggest a book that may be helpful to you and your readers?
It is called &quot;Til Death Do Us Part&quot; by Suzanne Johnson. It's a short paperback written about the day-to-day activities of the author's father and his love for his wife as he cared for her during a 15-year struggle.
It's quite a moving book. You can find out more here: http://www.alzstory.com/

Tim

October 21, 2009 8:13 a.m.

just last week I told my friend that I must have Alzheimer because I can never remember anything and as I get older I am getting nervous that I will forget my daughters name like that other day I missed pronounced my daughters name and I just laughed it off like &quot;I just gave you another name&quot;.I don't remember my childhood, I could not tell you the last movie that i'v seen nor what happened in it. In my mind I thought that only older people could get Alzheimer's. This is scary how could I go to a doc at 39yrs of age and tell them that I can't remember anything. This is embarrassing especially when I am at a time in my life that I am really trying to find myself and place on this earth.

effee

October 18, 2009 8:05 p.m.

My mother is rapidly progressing thru stage &quot;6&quot;. I don't want her suffering. I want to know if I should keep taking her to doctors and dentists for ailments not associated with her disease. She is not enjoying her life and is frustrated with her dementia. I want to keep her comfortable but I don't want to prolong her suffering. I just don't know how to handle this.

Jill

October 15, 2009 3:31 p.m.

My husband who is 72 has AD for 3 years
He is now getting very agitated mostly at family. I am his caregiver and getting ready for back surgery. The kids are afraid they will not be able to handle him. They are pushing me to do paperwork to have him put away. I handle him fine and not ready to make that move. I need someone who can give me some counsel other than family.

Brenda

October 1, 2009 1:26 p.m.

My mother is 90 and has been in a nursing home since May of this year. She has dementia/Alzheimers. Her doctor says she should not live alone. She cries most of the time now and says she wants to go home and if she can't go home she wants to die. Has anyone else had this experience?

Deanna

September 29, 2009 4:06 p.m.

I really enjoy the articles on this blog. After caring for my great grandfather for over a year I built the site AlzMall.com. I am really looking for those who are passionate about Alzheimer's care to contribute articles, stories, or just general information to my site.

Jerry

September 24, 2009 4:06 p.m.

Just found out that my inlaws couldn't afford their medicine so they stopped buying Aricept for my mother-in-law a few months ago. Will it be effective for her to resume taking Aricept?

Doris

September 23, 2009 11:34 a.m.

I found a great site where families can find a list of companies that makes tracking device’s for Alzheimer’s patients. Here is the web site address:
www.elderoptionsoftexas.com/article_alzheimers_gps_tracking_devices.htm

Lynn

September 22, 2009 8:39 a.m.

THIS WOULD BE AN INTERESTING RESEARCH STUDY!Recently read about a woman with an extraordinary memory who remembers just about everyday in her adult life. The key to her amazing memory was that she keeps going over &amp; over her past as if she had an endless recording in her head, she also keeps very detailed records of her everyday life. On the other side are the people that do not spend much time thinking about the past, don't think that much about the present but spent most of their time thinking about everything in the future. My research question is: Has there been a comparative study on this two types of &quot;memory&quot;? Are people that are focused more on the past less prone to alzheimers vs those who do not use their memory to &quot;record&quot; their past but rather keep focused on the future?

George

September 20, 2009 6:23 p.m.

One older women asked me if I would go to confession with her and I didn't think that it was appropriate. She was probably in her mid 70's. Do older people with Ad sometimes forget that we aren't in the Great Depression anymore?

Ian

September 20, 2009 6:20 p.m.

Does anyone out there have older strangers in their 70's-90's ask you what you do and you find it annying? Someone who lives near my house posted a sign on a wodden poll near his houuse and it has his opinion kids should &quot;Move Out&quot; and &quot;Pay as they go&quot;. That sign really distrubed me and caused me anxiety.

Ian

September 13, 2009 6:26 p.m.

Great blog . Thanks
http://alzheimersandmomblog.blogspot.com/

Karen

September 8, 2009 2:14 p.m.

My mothers caregiver is my father age 92. He talks to her and reads to her. She sits in a chair like she's sleeping, but she isn't. He says&quot;Dotty&quot; and she opens her eyes. I visit every few weeks and am grateful that she still knows me. I keep testing.

Cheryl

September 7, 2009 9:25 a.m.

September 7, 2009
M mom was diagnosed with Alzheimer's about 5 years ago and I know how difficult dealing with this disease is. I have used humor as a tool for getting through this time and I suggest that each of you out there do the same. Don't be afraid to admit to yourself and out loud that although you love your parent there are times when you have that thought that it would be easier for you and your family if they were not here anymore. I believe that it's OK to have these thoughs and express them. After all, it is true.
Anyway, back to humor. I would like to story. My mom went through a very long stage of not wanting to shower. For a very long time I was the only person she would allow to help her (I was always a lucky gal). This gave other family members a great OUT and showering my mother helped me to stay on my diet. As I would take me mom into the bathroom to prepare her for her dreaded shower she would curse, yell and swear she took a shower the night before. One day, I remembered how my mom loved to sing the old tunes, she was actually a very good singer. As I began to undress her I asked her if she would sing the song April Showers with me and help me with the words. Well, Betty (my mom) started belting out the tune. Singing distracted her for brief moments. It went something like this... When April Showers (F You), May Come your Way (I took a shower last night) they bring the flowers (go F yourself) that bloom in May - you get the picture

Lisa

September 6, 2009 1:12 p.m.

Despite the research that wages on, the etiology of AD is still unknown. The fact remains that AD is a profoundly isolating experience for the victim and the family members affected. With modern medical advances we are living longer than ever before. One risk factor that is not disputed is that advancing age increases the risk of developing AD. Most families affected know that AD is not a normal part of aging, but I am not clear if that fact is known across a cross-section of society at large. Ironically since we are able to live longer lives, we do not seem to pay much attention or honor our aged members of society. We are still a youth-driven culture. It is quite a sad statement.
I do believe writing about the experience, in the form of blogs or memoir can provide a bit of hope and some form of a healing experience for those family members affected.
My mother was diagnosed with AD in 1979, before the internet or the Alzheimer’s Association existed as we know it today. As a seventeen year old at the time, I am certain that I would have appreciated any information and connectedness the internet now offers.
As a physician who has treated many patients with AD over the years, I know the devastating isolation remains a destructive force for all involved.
I hope in the future to find even more information and support in the form of these blogs, and sincerely hope other health institutions follow Mayo’s example in providing this supportive blog.

Joseph

September 6, 2009 11:19 a.m.

I meant to say thanks for all the great info. I need all the help I can get. http://alzheimersandmomblog.blogspot.com/

Karen

September 6, 2009 11:17 a.m.

thanks for all the ghttp://alzheimersandmomblog.blogspot.com/

Karen

September 4, 2009 7:16 a.m.

Blogging for caregivers is very helpful in maintaining their sanity and feelings of being productive. Check out this fledgling attempt to cope in a rural environment
at http://hazidaze.blogspot.com/2009/08/keep-it-simple.html

Barb

September 4, 2009 1:12 a.m.

Its really appreciable Task you people carrying out at your research center.Peoples caught in Alzheimer really need care and proper treatment.
You said true that care partners for Alzheimer's patients are generally husbands and wives, daughters, daughters-in-law, and sometimes sons, grandchildren and friends.
I found one article, according to that Intel Lab is developing a new care partner that is AI, AI to Assist Alzheimer's Patients.
But i want to tell you one more Fact which i discover after a lot of searching and goggling and that is how to lower the risk of such diseases. Luckily i found it on &quot; www.fuelthemind.com &quot; under section Nutrition-&gt;nutrition_articles.
That Article real informative and help peoples to avoid or lowering the risk of certain diseases such as Alzheimer.
What will be the Best food for Brain?
1)Salmon and Sardine: Fatty fish oils.
2)Fitting the free radicals: Tomatoes.
3)B vitamin complex: Go for wholegrain.(Vitamins B6 B12 and folic acid)
4)Blueberry brain food.
5)Get your Zinc on: Pumpkin seeds.
6)Better than oranges for the brain: Blackcurrants.
7)Brain power foods - Gimmy' broccoli.
8)Lay it for me - Eggs.(Vitamin E).
More info you can find there as i mention above.

Smith

September 3, 2009 12:36 p.m.

My dear friend from HS is doing a memmory walk for her mom who has Alzheimer's. Please help her reach her goal. donate what ever you can. we must come up with a cure for this.
http://memorywalk09.kintera.org/faf/donorReg/donorPledge.asp?ievent=302500&amp;supid=262253889

Maureen

August 26, 2009 5:47 p.m.

I need suggestions on how to deal with my Dad's smoking. They just moved into a retirement center last week. Their is a &quot;smoking area&quot; however my Dad is not wanting (or forgets) to go their. What suggestions can I give my Mom on how to correct or redirect this behavior. I need input before they get kicked out!

susan

August 22, 2009 9:26 p.m.

Good comments re the use of social media and how it can help both the person with Alzheimers and their family and friends. http://www.wired.com/medtech/health/news/2002/07/53815 has an interesting article on how blogging and other activities to keep alzheimers patients to keep active minds is helping slow down the progress of the disease for them. http://www.alzheimerssupport.net/

AlzheimersSupport

August 13, 2009 1:25 p.m.

My 60-year old husband has started leaving things in weird places and is using strange words for familiar objects. Can't get through many sentences without messing them up in some way. Most alarming is what he does at night. I am jarred awake most nights by frantic movement, sheets on and off, getting up and down, slapping himself and strange jibberish talk. He never remembers when he wakes up. Could this be Alzheimer's?

Anne

August 12, 2009 10:02 a.m.

I have lost 5 close family members with ALZ. All in 2 generations. So I live in fear of developing it myself. But one of my favorite memories is of my father. My mother who didn't drive loved to shop. So I would pick up my parents, drop Mom off and take leisurely drives with Dad. It was something he and I did when I was a young child. Dad was always a junk food fan. This one particular day. I asked my father if he would like chips, ice cream, candy or cookies. He answered yes. So I bought him all the above. I still don't know how he was able to consume it all. A half hour late we picked up my mother. At this point my father loudly requested, &quot;Let's go for lunch, I haven't eaten in days....&quot; He ate a full lunch.

Patti

August 7, 2009 6:23 p.m.

My father probably has multi-infarct dementia and Alzheimer's. Lately my mother cannot get him to get up in the morning. It may be 2pm before he decides to get up. Then after he gets up, he may eat and then goes to his recliner where he goes horizontal. He is sleeping most of the day and he sleeps all night long as well. What is going on here?

Mary Ann in NC

August 5, 2009 3:33 p.m.

I tried to turn off cable news not wanting to listen to Micheal Jackson's death on TV 24/7. My mother turned it on every 15 minutes - and every time she did she was SHOCKED that Micheal Jackson had died. Fror 2 weeks I listened to story after story about MJ and my mother hearing the news for the first time every 15 minutes. It actually got very funny.

joanne

August 5, 2009 7:48 a.m.

I´d like to Know if there are any contraindication to the association memantine and sertraline.
Thanks

Filomena

July 25, 2009 12:08 p.m.

Mom is &quot;stage 7&quot; according to most recent book I have read. Today can't hold head up (which occurs and is expected) but she will not respond to us, open eyes, speak, her BP was elevated upon waking this a.m.; Nursing Home gave her med to lower and it is now ok, but she still is non responsive -- any suggestions -- is this part of it or something else--anyone's thoughts

Frustrated

July 22, 2009 10:26 a.m.

My mother will only get dressed and showered if her caregiver tells her there is a man coming over - any man will do the trick, a plumber, the landlord, a neighbor, or a delivery man. Once my mother is dressed she has forgotten about the visitor who wasn't coming and when one actually does, she is ready and delighted.

Corrine

July 15, 2009 12:20 p.m.

Joanne, your story made me laugh. My mother calls me often an leaves my name and my phone # on the voice mail. I explained to her that she needs to leave her name and phone number when leaving a message. But then I asked her what her phone number was and she repeated my number and I realized - who cares. As long as she's not calling 911 and knows my number, we're OK! Karen Marshall

Anonymous

July 13, 2009 7:39 p.m.

JULY 13 2009
I AM CAREING FOR MY DEAR COMPANION, OF 12 YEARS, WITH IN-HOME HELP. HE IS 87 AND HAS VASCULAR DEMENTIA. I AM 12 YEARS YOUNGER AND AM STILL ABLE TO DO A LOT FOR HIM, BUT QUICKLY REALIZED I COULD NOT DO IT MYSELF. WHILE I DO SOMETIMES GET &quot;OUT OF SORTS&quot; THERE ARE THE LIGHTER MOMENTS WHEN HE MAKES ME LAUGH. RECENTLY WHEN HE HAD CALLED MY NAME ABOUT 100 TIMES IN ABOUT AN HOUR, I SAID I WAS GOING TO CHANGE MY NAME. HE SAID, VERY SERIOUSLY, WHAT ARE YOU CHANGING IT TO SO I KNOW WHAT TO CALL YOU.

JOANNE HALE

July 13, 2009 11:12 a.m.

My mother loves to talk on the phone, especially at the end of the day when she can call me up to 10 times w/in 15 minutes. I use to get very frustrated but now I laugh and mentioned that nothing new has happened since we last spoke, 2 minutes earlier - gently reminding her of her last call. Being able to laugh about this and have fun w/ my mother is a gift that I won't have forever.

Anonymous

July 10, 2009 11:20 p.m.

Jaime: When my mom was in the last stages of dementia, with severe memory loss and addled behavior, she was surprisingly focused and lucid while talking on the phone.

Bruce Small

July 10, 2009 8:21 a.m.

My name is Kathy and I am the full time caregiver for my eighty year-old Dad who has Alzheimer's and lives with me in North Carolina.
When my Mom died in 2004 and Dad moved in with me, I had no idea what to do. But day by day, I found ways to cope, and even enjoy having my Dad with me.
So I started writing a blog at www.KnowItAlz.com, which shows the &quot;lighter&quot; side of caring for someone with dementia.
After a while, I added over 100 pages of helpful information and tips for caregivers. We even have a Chat room so caregivers can communicate with each other from home.
Please pass this link along to anyone you feel would enjoy it.
Thanks!
Kathy Hatfield

Kathy Hatfield

July 6, 2009 1:43 p.m.

When my grandmother got Alzheimer's she also developed a taste for sushi AND soy sauce! Taking her to eat sushi was the only time she wanted to go out to eat. I think she loved to eat sushi b/c she could eat with her hands w/o anyone saying anything. I remember one time, she rolled up her sleeves and ate with gusto as soy sauce was dripping down her arms. I pointed out to her that rivers of soy sauce were flowing down her arms and she was making a mess. She looked at me and said ' I'm old and I'll eat anyway I want to and who are you?!'

Charlene

July 1, 2009 11:01 a.m.

I lost my Dad few years back. He suffered from AD. It's been more than 8 years. To be honest, I still haven't recovered from the trauma. We did everything that could have been done. He was treated with Exelon, which was not effective for him. He was a construction engineer by profession and mathematics was his passion. So I don't agree to the point of view that an idle mind causes AD. The most traumatic moment was when he stopped recognizing the family members. The strong family ties in India makes you to stay close to the near and dear one during the last moments. I was the caregiver for the last several months of his life. My mother was the caregiver for 2/3 years. I want to do something for the patients suffering from AD.

Tarun from India

June 30, 2009 9:57 p.m.

I'm an Activities Director at an Alzheimer's facility. I have been doing this for about 6 months, so I am just learning. One of our residents claps her hands LOUDLY unless I am personally with her, talking to her or giving her attention. Her clapping is making us all crazy. She continues this clapping even when she is involved in group activities. any suggestions?

Mary

June 29, 2009 11:51 a.m.

I'm a doctor and saw a patient last week. She's an older woman who is always brought in by her loving, caring daughter. I noticed my patient was reading a book when I entered the exam room. I asked what the book was and the daughter told me it was a book her mother has been reading for the last year - at this point she has read it 5 times. Each time she finished it, she started it over b/c she couldn't remember she had just read it. When I asked my patient about the book, she only said that she really loved the book. I think this is the only meaningful aspect anyway - she knew she really loved the book and was spending her time with something that brought her pleasure.
When I came home that night, I told the story to my wife who asked me what the book was. I had to admit I couldn't remember! And still can't, which makes me wonder..............

Mike

June 26, 2009 9:01 a.m.

My mother has recently gone on zoloft (she is in a nursing home and I just got her off of an antipsychotic), She is sucking on her fingers, my hands, and anything else she can get in h er mouth. Is this common side effect? Can anyone suggest a better med for anxiety and sleeplessness?

Barb

June 19, 2009 4:37 p.m.

last weekend i was playing a card game w/ the woman i take care of. she has Alz but is very sweet and also has a sense of humor, although her memory is very bad and she's very inactive. her daughter was visiting us with her family so 7 of us we sitting around the table playing cards. my patient could not focus and really wanted to call to her daughter. we all explained that her daughter was sitting right next to her but she wouldn't let go of her need to call her daughter. finally her daughter took her cell phone out from her pocket and called her mother. they carried on a short conversation while sitting less than a foot from each other. the daughter said she was playing cards w/ a group of people her mother said good-bye and they both hung up. the card game was now able to continue. but first we said that mother and daughter had just had a conversation while sitting next to each other! the woman I work for thought that was the funniest thing ever and couldn't believe she had done that!but b/c we accepted her and went with he wishes it was easy and in the end a laugh for all. I take care of a very good woman who does get frustrated easily but she is able to see the silliness in things and that makes it a lot easier for me to be there for her! my sister does the same job for another lady but the mood is very sober and the lady is fading a lot faster. i see more activity and more laughter helps us ALL

Jaime

June 19, 2009 4:14 p.m.

Finally a story that is uplifting for the family, the caregiver and the patient. Yes this is a very sad disease but if we don't find the humor we will not be decent caregivers. Finding the lighter moments is not mean - it's honest and liberating. I laugh with my father and sometimes at the wacky things this disease makes him to. We still share a sense of humor and I'm able to be with him. He's not the same person but he still has a twinkle in his eyes and can laugh out loud like when I pointed out that he tried to blow out the battery operated candles! His humor is honest - he has now admitted to me that he never liked my cooking and is pleased he can't remember a lot of people - like his first wife b/c she wasn't very nice (he requested I not bring up her name and explain who she was-he likes not knowing!) My dad is a funny guy and I want to have good times w/ him for as long as I can. Our activities have changed and life is a lot harder - for me mostly - but we're still laughing! I think when possible this is an approached that should be attempted. Finding the humor has certainly made me a better caregiver and daughter. Has it made a difference for anyone else?

Joan

June 18, 2009 3:06 p.m.

I was with my grandmother when she was first diagnosed with Alzheimers, we were obviously upset about the news. My grandmother drove herself to the library to do some research on the disease. A few months past and I went to visit her, she had a stack of mail from the library regarding her overdue library books. As she looked at the pile of mail in disgust and said &quot;I don't know why the library keeps sending me these overdue notifications, I haven't been to the library in years!&quot;. Ironically all the titles of the books they are accusing her of checking out had the word Alzheimer in them. She laughed out loud. She never lost her sense of humor and we never stopped laughing with her. I think the laughter kept her around and 'healthier' than if she hadn't kept her humor. We miss her and still smile at her memory!

susan

June 11, 2009 10:47 a.m.

My Dad suffers from what we think is Alzheimers or dementia (confusion, memory loss), but we can't get him to see a psychologist or a psychiatrist about it (he's been referred to one by his general practitioner). My Mom is really struggling to try and get him help, but he isn't open to it. How should my mother or I approach this with my Dad?? There may be things/drgs out there that could help him, but he just isn't interested in seeing any doctor. Help!

jc

June 10, 2009 9:23 a.m.

My mother is in the mid stages of AD and she tells everyone I stole everything from her and makes up crazy stories that are delusions or dreams. I live next door from her and have always looked after her and my Dad. I am heart broken because I can no longer visit or help because the rest of the family says that I upset her. She has severe rages and is violent. I am at a loss of what to do for her.

Sherry

June 8, 2009 10:15 p.m.

My father has moderate to severe alzheimers. My mother is his caregiver. She will be out of town for 5 days and I will be taking care of him. I live out of state and thought it would be nice for him to come to my house for a change of scenery and a chance to do some different things. Would it be better for me to stay with him at his house or would it be a good idea for him to come to my home?

Karen

June 8, 2009 11:29 a.m.

As part of my work as an artist manager, I shepherded the publication of over 15 books and worked with very successful New York literary agents and publishers. Now I am working on a book about with my mother living with Alzheimer’s and the sorties of other’s dealing with a loved one affected by this disease. I am looking for real life humorous stories relating to Alzheimer’s for this book, Remembering Alzheimer’s.
http://rememberingalzheimers.typepad.com/

D. L.

June 5, 2009 11:03 p.m.

my son age 40 was diagnosed 3 months ago with early on-set dementia. Also the Psychiatrist called the diagnosis psudo-demntia. with severe depression. test were done in Portland Or famous oshu hospital. The only treatment was zolot which he is taking. My doctor feels there should be another drug presribed for him incase zoloft sends him into a high where would have no defence to this happening. He will need further treatment and they gave him 2 refills of zolot when he left the hosp. He is now living with is mother, has applied for social security benefits but I'm not sure he is getting out-patient treatment in Charleston W&gt;VA. I am very concerned for him.

Rich

June 2, 2009 7:51 p.m.

My friend of 55 years was diagnosed with Alzheimer's Disease today. Her symptoms suggest she's in the early stage, but she's had the symtoms for at least two years. Is the progression of stage 1 to stage 2 different for everyone, or can someone tell me the approximate amount of time until she reaches stage 2.
Thank you for any information you can give me.

-Margot

May 31, 2009 9:33 a.m.

Hi, my mum who is 62 was diagnosed with Alzheimers 18 months ago she had to go into a nursing home as she lived on her own &amp; doctors said she could not look after herself (my dad died 1992 aged 47 - cancer) she was a happy-go-lucky woman, loved bowling, dancing , driving &amp; was always out &amp; about.In the past few weeks she has gotten worse, this past week Doctors claim she does not have Alzheimers but has pre-senile dementia which is progressing at a rapid rate.As I live in Florida I wont get to see her until August when I go home for the month.I talk to my mum every second day, the same conversations but at least we hear each others voices.I have 1 brother &amp; 2 sisters who all live in Dublin close to my mum, my sister asked the Dr what is the life expectancy and his reply was just enjoy the time with her now sooner than later. Does anybody know the life expectancy of pre-senile dementia patients? I worry that something will happen before August &amp; I cant get home until then. The tablets she has been on for the past two years has had basically no effect on slowing down this disease.Does anybody know of anyone that has pre-senile dementia that could fill me in on what to expect? I or should I say we are prepared for the worst &amp; to be honest if my mum could step out of her life and look in she would not want the life she has now, I know nobody would but it is heartbreaking to see how she has deteriated over the past 2 years.Sorry if I went on &amp; on.Thanks

Joyce

May 27, 2009 2:38 p.m.

Check out www.shakelooseamemory.com. This company specializes in games for people living with dementia and alzheimers. The games are excellent, affordable and help people reconstruct &quot;real-life&quot; memories. They have a variety of games to choose from - all utilizing cards and dice.

Christine Tager

May 24, 2009 11:44 a.m.

my mother has had alzh. for about 8 yrs; & is declining steadily. But in the last 2 yrs has gotten this extreme skin rash/ consitiions (she's on same med's as b-fore condition began). she's been to several dr.s & specialists; had bi-opsies;etc-and been put on a myriad of treatments- anti-biotics; prednisone;benedryl & other anti anxiety/histamines; & topical stuff. NO ONE can find a root cause; but some Dr.s have suggested its a COMPULSIVE DISORDER relating to Alzh.-(but she continues to be red; & blotchy...)- Has anyone experienced symtoms such as this in an Alz. patient? _ & if so; what have you done to keep the person from CONSTANTLY scratching?

Sue

May 20, 2009 3:40 p.m.

I find any card game works. My mother will be not present and then I'll suggest a card game. It can be gin w/ the 2 of us or a more complex game we play with 5 others. Once the game starts, she generally beats us all!

Deborah Levin

May 18, 2009 9:08 p.m.

Hi, I am looking for suggestions regarding games that people with early Alzheimer's could play to maintain some degree of interaction and exercise of their mind.I would appreciate any suggestions.
Thank you

lourdes

May 15, 2009 1:30 p.m.

Sorry, I didn't realize my comment below would cut before getting to the end. My blog for your stories and to read other stories is:
http://rememberingalzheimers.typepad.com/
And again - thank you!

Deborah Levin

May 15, 2009 1:24 p.m.

I am looking for real life humorous stories relating to Alzheimer's. This is a dark, serious disease and I hope that my desire to receive stories that offer laughter is not misconstrued as offensive. My hope is to provide levity. The intent is not to make fun of anyone's situation but hopefully by laughing we will survive easier, talk more openly, and be better caretakers of ourselves and others.
My mother was diagnosed with Alzheimer's several years ago. My mother is not who she used to be, but once I began to see her sense of humor, which still exists, and share her stories - often back at her and often with others, I began to feel healthier. This ability to see the humor and the silliness has allowed me to be with my mother, rather than back off from fear and frustration. I have been a better daughter and have given my mother better care.
My mother's condition is not a secret nor should my mother be a secret. We know the horrors, I want to share the comical which will open doors of the unspoken. I treat my mother with dignity and honor, but I can still see utter madness and craziness of her behavior - which can be very funny.
The HBO series currently airing people shows with Alzheimer’s having a discussion around a table with their caregivers. One man states there is a lot of ‘memory humor’ out there. Another man responds with ‘you can't cry all the time, you have to be able to laugh'. He then inadvertently made a memory 'mistake' that he and everyone else laughed abo

Deborah Levin

May 11, 2009 9:07 p.m.

Although my mother does not have Alzheimer's, she does have some memory issues. My problem is that she is very resistant to taking her medications (blood pressure, diabetes, etc). There are quite a few meds to take both morning and night. Crushing does not work because she is still very sensitive to the taste. Since it is dangerous not to take meds regularly, I am seeking any strategies that might work......she hates swallowing pills....My father attempts to administer them during the day and I administer them at night......although I have somewhat better luck, it is far from foolproof.

Anonymous

May 6, 2009 4:32 p.m.

My mother is 78 and was diagnosed with Dementia a few years back. I have become her primary caregiver but I am having many problems with my father. Since my mother's diagnosis, my father has altered my mother's will, medical power of attorney, living will, trust, etc. I was the trustee to their trust, but have since been removed by my father. My father considers his Teamster's pension, his Social Security and their trust as all his. He believes that my mother only has $380 a month from Social Security. I am given $300 a month to feed and take care of her (not enough). I take her to all her medical appointments and a senior day facility. I also make sure she takes her medications daily. I spend an enormous amount of time with her and she has improved considerably. My father does not want to take care of her. He wants nothing to do with her. He wants to put her in a nursing home (against her own doctor's advice). There are many other serious issues.
I filed a complaint with the State Adult Protective Services for Neglect and Exploitation. They said they would offer mediation and help. Instead, I was told that my mother is my father's property and he can do whatever he wants with his property and papers. I was utterly disgusted. I filed a complaint about this response with the Govenor, Risk Management, and the Department Secretary. In response, I was told that they were sorry for the misunderstanding but they stand by their decision.
I am lost and don't know what to do.

al

May 6, 2009 4:18 p.m.

Alzheimer's is a very dear subject to my heart! I enjoy reading about the issue. I only can hope that one day we as americans can put a stop to this awful disease. Thanks for keep america updated on the issue.

Shineka Jones

May 4, 2009 12:59 p.m.

My mom is 55 and is experiencing severe dementia. She has a masters and was very successful.... Now she can't read, take a shower or even feed the dogs. She watches TV all day and is starting to make up stories.... I am not sure what to do. There is no evidence of Alz in her family on either side. Could this be caused by a chemical imbalance? any ideas?

Dawn

April 28, 2009 12:06 a.m.

May be it will be of interest of those who wants to be effective against AD.I am talking about the
so called
Brain Software which I've created as a result of 32 years of effort to activate deep unconscienece
structures of Brain and through that permanently keep Brain specifically stable.We through years inevitaly
losing power of Cortex.And only hope to avoid that ---Connect Cortex with Subcortex with help of Brain Software.I have now full proof that soft works and
ready to help those who wants to prevent AD.

Albert

April 22, 2009 9:22 a.m.

I'm 46 and I have early-on-set Alz. Why did this happen to me? What in my brain suddenly decided to stop remembering? I can drive, dress myself, cook...but when I want to find something immediately, I can't remember where the thing I was needing was. Recalls are sometimes slow.
I get very angry at myself and I don't want people to know about my condition. It's like having ADD plus I 'm starting perimenopause! Great ! Whats next?
What should I do? I workout, do crosswords but...

gammij

April 17, 2009 4:38 p.m.

Wanted to let you know that my mother experienced a similar episode, could not complete a sentence, slumped over on the couch, jaw hanging down, basically 'asleep'. Doc's called it an 'altered state episode' and it lasted about 7 hrs. After Mom rec'd fluids, she came out of it slowly, and seemed normal that evening. They said maybe it was her Alz, maybe dehydration, but basically a seizure of undiagnosed cause. She was visiting with me from her home out of state. My sister promptly put her on a plane and sent her back to her apartment - alone, unable to effectively take her medication, and without follow up medical care.

minisaezme

April 17, 2009 6:24 a.m.

I am trying to find out more info. My father was diagnosed sometime ago but he has a symptom that I can not find in research so far. Dad will all the sudden feel the need to lay down and will suddenly forget things(the day, where he is,etc) but he always remembers my mom. He goes into a slight comma state and may stay that way for several hours comming out slowly and having memory problems at first. The Emergeny ward and his Drs have said the cause was his alzhimers, reflux, his heart but nothing ever shows up on any test. Does anyone else out there have this sympton?

mommomgri

April 2, 2009 11:51 a.m.

Hi, does Alzheimer`s desease affect people under the age of 30.

John?

March 29, 2009 7:51 a.m.

hello, i was diagnosed with early onset of ad. i will be 67 next month. i came across an article that said a person died of early stage of ad. my question is how does one actually die of ad? is it painful? do you reaize that you are dying?

liz

March 23, 2009 5:55 a.m.

Hello,
My mom was diagnosed with AD about 2 1/2 years ago and COPD about 1 year ago. She is doing okay. There are good days and bad days.
Has anyone ever heard of a product called MAXGXL? I am hearing good comments from a variety of people who are using it, primarily what is catching my attention is that it seems to help the energy level of people with chronic, long term diseases, like cancer. I am going to talk with my mom's FMD in a couple of weeks and see if this might be something to try for her. If there is anything I can try, that won't harm her, I would like to try. The worse thing about this product is that it is one of those pyramid companies. The people I know who are buying it are not dealers. I would buy off of the internet.

Christina

March 17, 2009 10:09 p.m.

Hi Everyone. I wanted to pass along information about the ICARA (Bapi) study (www.icarastudy.com) if you or someone you know has a diagnosis of mild to moderate Alzheimer’s.
The goal of the Bapi study is to explore if an investigational drug can help slow the progression of Alzheimer’s Disease. There is no charge to participate, and a medical team, including a physician, will monitor participants throughout the study.
It is important for patients and families affected by Alzheimer's to consider participating in clinical studies. Clinical studies that test new treatments are the best chance we have for fighting this disease.

ICARA Study

February 12, 2009 12:50 a.m.

We just took mom to Hawaii for 9days. It was good but also saw a lot of basic duties my mom now needs help with. How do I talk with my dad about we are trying to help as much as possible but perhaps he needs to suck it up a little more. Sometimes I think my dad contributes to the confusion/behavior by wanting to continue to take my mom to all these social events and travel to their vacation home in Scandinavia twice a year for 2months each? Feeling guilty and trying to do as much as possibly can. I feel like I have lost myself.
Thank you for letting me vent.

flygirlalaska

February 12, 2009 12:43 a.m.

My mother has had alzheimers for the last 8 yrs. Doing quite well until about a year ago. I am really starting to see the signs of this ughly disease. I'm not quite sure how my dad is dealing with it. He has been quite spoiled all his life. My mother was the rock in our family and took care of everyone and everything. Now she needs our help and it has been really hard to get all 5 siblings to step up to the plate and help out my dad. I realize he is not in an easy position and I sometimes think he forgets my moms behavior is the disease and not really my mom. My sister and I do most of the help so my dad can have a break. He has now informed us that he needs 2- 3 days off per week and wants a 3day weekend to himself once a month. This is after just taking a 2week vacation my himself where us kids helped to take care of mom. My big issue is that I am tryng to do as much as possible along with raising two toddlers on my own because my husband is gone so much, My mom has gone back to her native tongue and gets frustrated with my kids when they don't listen to her and she thinks they are disrepecting her. It hurts me to see her get mad at the kids when they don't understand. HOw am I to deal with this? I feel guilty if I don't help out more and at the same time I'm loosing myself since I have no time for me or to keep up with my house. I feel guilty at night because I get short with my kids since I feel like I need to be doing more at home and unable to keep up.

flygirlalaska

January 22, 2009 4:19 p.m.

I understand where you are coming from Del L. My mother in law would go back in time too and not understand why she could not call her husband, who passed in 93, and have him take her home. This is a natural part of this disease. Also is she getting more aggressive after the sun goes down? My beloved mother in law who would not hurt a fly normally would get angry and go back in time after the sun went down and way diagonised with &quot;Sundowners&quot;. The Dr perscibed some meds and she was much calmer. She is in a home now and doing really well, she is happy and healthy. She knows she loves us but I don't think she knows I'm her daughter in law. You are not alone in this and I am thinking of you and praying for you.

pam

January 18, 2009 10:56 p.m.

Hi, I take care of my 87 year mom who is in the advanced stages of alzheimer/dementia, not sure which. I would like to join the Tues 7PM chat posted by Kathy Hatfield on Nov 30, 2008 The link that was provided did not work for me. My e-mail address is jones@sbcglobal.net. If you could send me an e-mail with more information on how I can be a part I would surely appreciate it.

Irene Jones

January 9, 2009 5:53 p.m.

Del L. This is in regards to your situation. Is your wife on any anti-depressant medication? My sister was extremely angry and at times violent and her husband took her to a psychologist who put her an anti-depressants. Her husband calls them the &quot;anti-bitch&quot; pills. He said it was the best thing he ever did. It has leveled out her emotions and she is much more laid back. She still gets mad sometimes, but the rage isn't there anymore.

Jill C

January 9, 2009 5:48 p.m.

Hi, I am 47 years old and my sister is 57 and has early-onset alzheimers. On top of that my father is 79 and he says he has dementia, but I am pretty sure he has alzheimers. My sister is actually worse than my father, but I think this was the most depressing Christmas I have ever had. I see my dad often, but my sister lives out of state so I only see her about 3 to 4 times a year. She came out for Christmas and I had just seen her about 3 months ago. She is definitely worse now than she was 3 months ago. I don't really have anyone to talk to, my mom feels the same way I do, we want to be strong for eachother so we can't show how we really feel. My husband, well, he tries, but sometimes he just doesn't get it. Sometimes, he says, well you know they are going to get worse. Well yes, I do know that but you don't have to say it like that. I like the &quot;let caregivers feel what they feel.&quot; That really hits the nail on the head. I don't want anyone to fix it, they can't. I just want someone to let me cry and give me a hug. They don't have to say a word!

Jill C

January 5, 2009 8:42 a.m.

I just finished reading a new book &quot;MEMORY LESSONS&quot; - by Jerald Winakur, a geriatrician. He eloquently and poetically describes the challenges faced not only taking care of the elderly, but also in taking care of his own seriously failing parents.
It explores both at home and institutional care, but does it in a very personal empathic way. As a psychologist who deals with the elderly and their families, I found this beautifully written and very helpful.
Dr. Charles Merrill

Dr. Charles Merrill

December 18, 2008 11:44 a.m.

I am my wife's care giver and the past year has been one of going downhill. Last night was the worst we have had. She becsme so angry at me that she struck me across the neck in the area where I have carotid atery surgery, She seems to want to go back in time to when her parents were alive and though we live in her old home thinks it isn't her old home. She looks for her Dad's phone number in the book to call to get her out of this situation and take her home even though he has been dead 43 years. Iam 80 and she is 79 and I think I am getting near the end of ability to handle the situation. Perhaps someone has a suggestion as to what I can do.

Del L.

December 16, 2008 6:00 p.m.

Hello friends, my name is Frederick, I am a person addicted to Vicodin, as it is a very powerful painkiller for the constant pain I have for the disease, is painful to see how my life is finished and I lose sensitivity, time and Many people do not understand what they feel, I hope you can find a cure for my illness, and thus fail to suffer and also stop making a lot of people who suffer want me, here http://www.findrxonline.com/rss/articles/school-alzheimer.htm may understand our problems and also learn about this disease, so they said they understand people like me because some times lose track of time and where more support is needed ..

Frederick

December 14, 2008 9:31 p.m.

Is it possible to develope early onset alzhiemer's without a family history for it?

Parmalee

December 12, 2008 11:13 a.m.

I always enjoy your blog.

Alzheimer's Team

December 5, 2008 3:28 p.m.

Point blank, my mother died of dementia a few years ago. It was very difficult to watch and participate in the process and I have to say I'm scared that I'll get it too so I'm very motivated to find a cure. I've noticed as I get older, my short term memory is a little sketchy at times. My brother and I have started a project called &quot;I'm Tired of...&quot; bracelets that are designed to raise money for charities supporting some serious world causes. The I'm Tired of Alzheimer's bracelet is one that I wear every day and I want to get the word out. These bracelets are eco friendly, made out of recycled tires and metals, and they cost only $10. Half of that ($5) from each bracelet sold is donated to the Fisher Center for Alzheimer's Research, which was called out by Oprah as the single best Alzheimer's charity in the country. I hope you will check out our bracelets at www.ImTiredOnline.com.

Carrie

November 30, 2008 3:03 p.m.

My name is Kathy Hatfield and I am the primary caregiver for my 80 year old Dad who has Alzheimer's disease and lives with me in North Carolina.
I am writing a daily blog on my caregiver website that shows the lighter side of caring for someone with dementia. There is also lots of information about dementia and caregiving, as well as a LIVE CHAT every Tuesday night at 7:00 p.m. Eastern time for caregivers who need support, but cannot attend a “live” support group.
Please pass this link along to anyone you feel would enjoy it.
www.KnowItAlz.com
Thanks,
Kathy

Kathy Hatfield

November 6, 2008 9:37 p.m.

I just put my mother in an Alzheimer's facility today. She cried and screamed and collapsed on the floor as I left. I feel so horrible and guilty.

S. Baker

November 4, 2008 2:53 p.m.

Thought some of you may be interested in choosing Alzheimer's Association to receive a percent of all your holiday gift sales. You can do this by going to www.nonprofitshoppingmall.com and shopping from their list of over 250 retailers.
Easy way to fundraise just by doing your usual holiday shopping!!!
ENJOY + Pass it on...

Katie

November 2, 2008 5:10 p.m.

I have a close family member who is suffering from Alzheimers and is having a hard time dealing with it. I am always reading articles about dealing with alzheimers. The articles would be useful to anyone who is or knows someone who is suffering from the disease. Feel free to check it out.
http://www.thirdage.com/alzheimers

Jeff D

November 2, 2008 7:25 a.m.

Amber, there is a genetic test for persons who have had two immediate family members with early onset Alzheimer's. It doesn't have anything to do with ApoE (Late Onset Alzheimer's). I am 46 years old and am currently waiting results of this test myself as my father died of dementia in 1971 at age 50 and now my 60 year old sister is in a nursing home with ALZ. I've been under a neurologist care for over a year. I am very nervous about getting the results. It takes three weeks from the time the blood is drawn to get the results. There are three markers this tests for and if found you're considered to be destined for early onset alzheimer's. I did not have counseling prior to my test, at this point though, I've spent 40 years wondering if my dad's condition was hereditary so it's time to find out. I have an autistic 19 year old and a 15 year old. I had another sister who died of ALS 10 years ago.I can't help wondering if the Autism, ALS, Alzheimer's are all related. I'm a single mom. I'm scared and need to know how to proceed.

Kris in Illinois

October 29, 2008 10:57 p.m.

Kathy, I am in a similar situation, I am 49 and my husband 50 was just diagnosed with ALZ in September. It is tough to deal with this disease at any age, but I find it is really hard when we are relatively young. We have 2 kids,16 &amp; 18 and my Mom lives with us too. I find I can't let myself think too far ahead, just think day to day. Luckily he is still working. Sending good thoughts to you, stay strong and just make it through the day.

Deirdre in Minnesota

October 24, 2008 8:28 p.m.

Amber make sure your client has had all the blood work to rule out anything else that could cause dementia. B12 deficency, syphilis, heavy metals, parkinsons, carbon monoxide. The only real way to dianose Alzheimers is by process of elimination of everything else and tracking of decline, &quot;MME&quot; Mini Mental exam, our neurologist pretty much suspected alz right away then it was just a process of elimination, best of luck

Kathy in Indiana

October 18, 2008 5:51 a.m.

Not a comment but a questiion from a first time user of this blog. My 75 year old wife was diagnosed 3 years ago with Alz and rapidly declining. Of great medical concern, she has lost 20% of her weight (22 lbs) in the last 4 months. Doctrs tell me weight loss and diminished appetite are common and 'there's not much we can do'.
Has anyone out there experienced this and have some suggestions?. I'd be really grateful. I'm challenged at how to get her to eat. Thank you , anyone.

Bill - ON Canada

October 10, 2008 10:12 p.m.

I am a social worker and I have a client who is 47 years old. She was diagnosed with Alz. when she was around 43. We live in Idaho and there doesn't seem to be any specialist who have a strong emphasis in treating or diagnosing Alz. She, as well as myself, wonder if she has been misdiagnosed. All of the Drs. she has seen give her these answers or opinions that are not certain and are
&quot;swishy washy&quot;. Are there any tests (besides MRIs and EEGs) or genetic testing she can have done to ensure she has been accurately diagnosed? Can medications cause symptoms of Alzheimer's or are there other health problems that could resemble early onset Alz? Any help would be great!

Amber

October 2, 2008 9:21 a.m.

Hi everyone, I am not sure how this might fit in with all of the other blogs, but I felt a need to share my recent experience. I (in my twenties) had to put my elderly father (79) into a nursing home after my mother battled cancer and could no longer care for him. He was recently transferred to a new home after the one he was in closed down. He was there barely two months when I just got a call that he had been attacked in the middle of the night by his roommate-another elderly man in the same condition. He apparently was struck many times in the face with a piece of a wheelchair and did not survive in the emergency room. The roommate is now awaiting sentencing on charges of homicide and no other home/place wants to take him in. He may end up in a psych unit of a prison till he dies. The home was a very good one and I never thought this would happen-never occurred to me that another patient would do something. We always worry about the staff hurting our loved ones, but we shouldnt assume that other patients are never a danger either. It was shocking for everyone and quite an eye-opener for me. Maybe someone can take something away from this-I don't know! But thank you for letting me post.

Sofi

September 21, 2008 11:07 a.m.

I am 45 and my 53 year old husband was just diagnosed a month ago. He is now out of work and cant drive. I need to chat online with someone in my situation. I dont mean to offend any one, but, everything I read is Elder care, aging parents and so on. Im having trouble relating and feel alone. HELP

Kathy in Indiana

August 27, 2008 12:00 p.m.

August 26, 2008
My suggestion to any caregiver,is to get your loved one on Nemanda as soon as possible. The combination of Aricet and Nemanda has a calming affect on my husband. My childern were the ones that called my attention to strange actions of my husband, before I guess I wanted to admit there was something wrong. He has been with Alzheimer's for about seven years. He has speech problems now, where you would swear he is speaking pig latin. Our childern understand, but it is hard when we are out in public. He goes everywhere with me, and I believe it is wonderful he can. He was such an inteligent man,always helping people with projects in carpentry.

Lucy

August 25, 2008 8:41 p.m.

My 85 yr.old husband has early stage Alzheimer's. Under care of the Geriatric Psych. Dept. of the V.A., he has been taking Aricept and receiving an outside prescription for Namenda because he does not qualify for the Medicare qualification. A new director of the clinic refuses to give him a written prescription so that he can have it filled at a local pharmacy. Some studies have reportedly shown a benefit from taking Namenda in early stage of the disease. So far he has remained fairly stable for 6 yrs.

Susanna Owens

August 9, 2008 9:13 a.m.

Does anyone have expeience that they have been misdiagnosed with Alzheimer's because of their medication?

Judith

August 9, 2008 9:11 a.m.

Has anyone had the situation where one side of he family is trying to get a diagnosis on a family member so they have control over the individual's finances and health decisions?

Judith

July 20, 2008 5:30 a.m.

I am taking care of my AD mother in law with Parkinsons too, and she has lived with me for 13 years. She was diagnosed 6 years ago but I suspect her doctor knew for quite some time prior but did not dare to tell her--she thrived on denial and was a bit contrary. Anyway, I just want to say that I get a routine and stick with it and have a lot of recipes I use with her that are all fruit/vegetable/whole grain and antioxident type foods. I feed her all pureed foods for the last two years and I think what Dr. Schneider said in this blog (page 4 today but that might change) is very very important to all of us, and for all of us to not wait to get AD but rather eat as many fruits, vegetables and whole grains every day as possible plus exercise . My mother in law ate more meat than anyone I ever met. Not many vegetables but did like some fruit. What we all eat causes many diseases--read THE CHINA STUDY and prepare to live a healthier life! I also suspect, and people may not believe this and certainly I am unable to prove this, that some of the people diagnosed with AD may have in fact eaten Mad Cow Diseased meat--variant Cruetzfeld Jacobs Disease, which has an incubation period of 8 or more years. If your relative is young or middle aged and the disease progresses rapidly I would think a brain autopsy should be done--but the insurance companies won't pay for that. A meat and dairy diet is a diet promoting diseases. Genetics is minor in comparison. Take good care!

Kathy

July 12, 2008 11:36 p.m.

My husband was diagnosed with AD in 2006- he was 53. He did not except or his mind would not let him hear the doctor and to this day still thinks it was just lots of stress at work that caused his forgetfullness etc. I told no one for a long time - I had one son entering his senor year of H.S. and really wanted him to be a able to choose a college without the burden of wanting to stay close to home for me. Thankfully he graduated and will soon begin is Soph year. My youngest son is now as senior -- my prayer is that my husband can maintain enough for my younger son to also find his school -- So -- my husband does not accept it and I have never told my children -- They just think Dad is goofy sometimes, although they suspect something - they have never asked - if they do I will tell them - but what do I do about my husband -- he has never once asked about his medicine- Has anyone NOt told their spouse?? He is now 55 and I am 49. any help is appreciated

LynnT

July 11, 2008 7:28 p.m.

My cousin who is 37 with children and a husband is away in the military has been recently diagnosed with Alz. Any suggestions on how to help her with acceptance,and what to do first any help would be greatly appreciated.

Janine

June 26, 2008 7:30 p.m.

I 'AM TRYING TO FIND OUT AS A WIFE IN THE STATE OF MINNESOTA IF I CAN GET PAID TO TAKE CARE OF MY HUSBAND,WHO HAS ALZ,DOES ANYBODY KNOW?

Sue

June 23, 2008 1:20 p.m.

To all of you caregivers who are looking for activities for memory treatment and brain exercises. I developed and designed Memory Jogging Puzzles and Memory Treatment Playing Cards with themes by Norman Rockwell &amp; The Saturday Evening Post Covers. Together these are a great kit. I have tested these products in Memory Treatment Centers and the response has been amazing. The residents love the images, doing the puzzles and playing the matching cards. They reminisce, laugh and their memory is jogged. It has been a fascinating experience for me and very gratifying to see their responses.
http://www.memoryjoggingpuzzles.com
karen@memoryjoggingpuzzles.com

Karen

June 9, 2008 2:17 p.m.

I'm Carol Marak and was a caregiver for my dad living with Alzheimer's disease. While it was difficult losing my dad each day to the dreadful disease, it was worse for him.
Because of my challenges and wanting to help mom and dad, I've developed a website call WorkingCaregiver.com and blog on Alzheimers, working caregivers, and how best to find care for aging parents.
Thank you for being here for families dealing with this disease.
Carol Marak - www.WorkingCaregiver.com

Carol with WorkingCaregiver.com

June 6, 2008 12:08 p.m.

My name is Kathy Hatfield and I am the primary caregiver for my 79 year old Dad who has Alzheimer's disease and lives with me in North Carolina.
I am writing a daily blog on my caregiver website that shows the lighter side of caring for someone with dementia. There is also lots of information about dementia and caregiving, as well as a LIVE CHAT every Tuesday night at 7:00 p.m. Eastern time for caregivers who need support, but cannot attend a “live” support group.
Please pass this link along to anyone you feel would enjoy it.
www.KnowItAlz.com
Thanks,
Kathy

Kathy Hatfield - www.KnowItAlz.com

June 5, 2008 1:46 p.m.

I have a dear female friend who just turned 55. I have noticed profound changes in her behavior in the last 3 years. She's an RN, but has not worked for the last 4 years. A few of the things I have noticed:
1. Doesn't understand how a credit card or debit works.
2. Walked out of a store with unpaid for items.
3. Doesn't know how to write a check any longer.
4. Doesn't understand what a sales tax is and why she must pay it.
5. Panics when she is home alone.
6. Calls friends &amp; relatives literally every 1-2 minutes if she can't reach them on the phone.
7. Doesn't understand how to use recorded message phone prompts ~ she gets very confused &amp; panics if she has to 'press 1' for so and so; 'press 2' for this or that, etc.
8. Can't remember where she has put packages she has just taken into the house (within 15 mins. or less time)
9. Panic when she was boarding a plane by herself. Called me to pick her back up at the airport, because she was too frightened to fly. She's flown many times by herself before.
10. Starts talking about things that have nothing to do with the present conversation. Repeats sentences over &amp; over.
Should I talk to my friend's husband &amp;/or children? We have been their closest friends for over 16 years, however, I do not want to cause alarm. Could there be a dementia problem? I'd appreciate ANY guidance anyone can give me...I'm at a lose as what to do....

B.J. from FL

May 28, 2008 9:53 p.m.

Don,
If you did not have mood swings you would be a superman. I took care of my wife for over nine years before she passed away. She passed on Dec. 8th 2007 and I still have mood swings. Do not be concerned it think it is normal. I have just started to live a semi-normal life now. I went to see my Grand Daughters over the long weekend. I missed their first eight years of their life because I could not leave my wife. It is part of caring with some with early on set. Let me know if I can help more.

Nosnarfu9

May 28, 2008 9:06 a.m.

I'm hoping that someone here has some input to help with our delemma with my Dad. He's 87 and although Mom says he doesn't have Alzheimers, that it's dementia, the symptoms are more on the Alzheimers side and we sense that Mom is in denial. Dad has become a bit promiscuous in the past months. There was on incident where he was a bit to friendly with his &quot;touchy feely&quot; with a visitor and most recently while sitting in an office and at home visiting with relatives he was sitting in his chair and would expose himself and start playing with himself. Recently I was present when one of these episodes happened. Mom said Dad's Dr. gave him some medicine for his behavior, but in checking out the medication on the internet we found that it was a tranquilizer type medication. Mom said that he hadn't done this for quite some time, but then again she has missed other times when someone else has seen him expose himself - and she thinks he did this because he didn't take his pill that day. Based on the information Mom had previously given me on Dad's status, I thought a few days vacation would be good for them. I booked them on a flight and have flown here to fly them back home with me. Now I have very strong concerns not only with Dad wandering off, but exposing himself in public and playing with himself. I have about a week to come up with a medication to modify this behavior or else thier trip will have to be cancelled. HELP!!! Any suggestions??? Mjk

Mjk

May 26, 2008 11:17 p.m.

May26 2008
I have ben careing for my wife going on 3years.Ihave mood swings that i am concerend about

Don

May 26, 2008 4:26 p.m.

An excellant book and source for anyone with dementia or dealing as a caretaker is
&quot;The 36 hour day&quot; by Nancy Mace.
I used this with my Mom and my sisters, it was SO helpful.

Marcia

April 20, 2008 10:57 a.m.

I know that everyone on this page is dealing with, but I don't know what to do anymore. It has taken my family and pretty much torn us apart. It is affecting everyone differently. I am going to start going to counseling for myself and hopefully to help everyone in my family. Any suggestions on how to handle this with your children. Mine are 20 and 23 and I feel like I have put to much on them with talking about this. I know how hard it is for me I can't imagine how hard it is for them. Everyone says take it day by day. But sometimes that day is really hard. jm29

jm29

April 15, 2008 5:57 p.m.

To jm29 - Thank you so much for your thoughts and prayers. How nice that a stranger can say something and it mean so much. It sounds like we do have a lot in common with this disease. I hope your children know all about this disease. I think the more they know, the more they will be a help to you. I wish so much I would have learned everything I could have about this disease so I could have been there for my Dad and step Mom more. I just had no idea all that was going to happen and how fast. My step Mom always made everything seem fine. Everytime I would call and check on my Dad. She is a wonderful person. She just took care of my Dad and didn't want any of us kids to know just how bad things were. I miss my Dad so much, I had been missing for a while. Again thank you for your kind words. Good luck with everything and may God be with you every step.

Charlene Milligan

April 10, 2008 12:19 p.m.

I just wanted to give my deepest sympathies to Charlene. Your post really hit close to home. We have alot in common with this disease. My husband has been diagnosed with AD and is only 55 years old. He will be 56 May 4th. We have 2 daughters and he has 2 children from a previous marriage. My step-daughter lives out of state. I think that they are aware of the progression of this disease. My step-daughter is a nurse. Right now we are in the early stages of AD. We first noticed something wrong about 4 years ago. Right now we are all hanging in there. You will be in my thoughts and prayers.

jm29

April 3, 2008 7:57 p.m.

Well last time I wrote anything on this site was just March 17th. Now I'm writing to say my wonderful Dad passed away yesterday. I can't not believe how fast this horrific disease had totally consumed my Dad and now he is gone after only 3 years. Sunday my Dad did not sleep at all, he hardley slept any days, and then finally fell asleep about 7am on Monday. My step Mom tried to wake him up about 7 that night and he wouldn't wake up. She called 911. She called me around mid night and said they were putting my Dad on a ventalater until I got there. He lives in another state. I got there around 4pm the next day. My Dad was so small. This young 57 year old man looked 100 years old. All his organs were starting to fail. We told them the doctor that we were ready to take him off the ventalater, the doctor told us he wanted to wait until the next day because he wanted another brain test done. We were all so upset, no matter what we said they made us wait. So we sat with my dad all night and talked to him and told him how much we loved him. They finally took him off ventalater at 10am and he was gone at 10:23 yesterday. My Dad is a doner and everything that is still good will go to someone in need. My Dads brain will be donated for research for this dignity robbing disease. It has to be stopped. Thanks for listening, I will still visit this site offten. Good luck everyone and may God be with you all.

Charlene Milligan

March 26, 2008 8:53 p.m.

Gordon and Kathy L,
Neither one of you of ever taken care of a early on-set person or anyone with AL have You? My wife died on December 8, 2007 of early on set. Do not try and write about it until you have gone through it. You can not do it justice.

Nosnarfu9

March 25, 2008 4:33 p.m.

I just read a book about Alzheimr's disease and found it very helpful. It is called &quot;Communicting for Care&quot;. It is a quick read.

Gordon

March 20, 2008 1:16 p.m.

If you know anyone who is looking for engaging activities to keep their minds active, I hope you will tell them about &quot;Brain Aerobics Weekly&quot; (www.brainaerobicsweekly.com) which is written for people who are family caregivers, working with people with mild to moderate dementia or who just want to keep their brains active. It offers a variety of exercises and materials in a light-hearted way and includes information on adapting the activities for people with dementia. I have also begun publishing online the Wiser Now Alzheimer's Disease Caregiver tips at www.wisernowalz.com for which I was known in the 1990s. This publication is works well for individuals, staff and support groups. It is difficult to get the word out to ordinary folks, so I would be grateful if you would check out the samples and let me know if you have suggestions for reaching others. You can learn more about me at www.wisernow.com, which is my main website with lots of informations and resources.

Kathy Laurenhue

March 18, 2008 7:32 a.m.

My name is Kathy, and I am the primary caregiver for my 79 year old Dad who has Alzheimer's disease and lives with me in North Carolina.
I am writing a daily blog on my Alzheimer's caregiver website that shows the lighter side of caring for someone with dementia.
I have also added over 100 pages of resources for caregivers that I have gathered over the three years Dad has lived here.
Please pass this link along to anyone you feel would enjoy or benefit from it.
http://www.KnowItAlz.com
Thanks,
Kathy

Kathy Hatfield

March 17, 2008 10:52 a.m.

My Dad is 57 and was diagnois with this horrific disease barley 3 years ago. I am horrified of what the disease has done to my wonderful Dad. He was a strong man at 240 pounds and now is a frail 104 pouunds. He does not know who I am and does not talk. He is unable to do anything for himself anymore. He just constantly walks around mumbeling. My heart is broke seeing my Dad like this. Everthing is happening so fast. I was very nieve when I learned of my Dads illness. I thought that he would still live a normal life just maybe not rememeber things and maybe one day not know who I was, but I cound not be more wrong. My Dad seems to already be in the final stages of this disease and it's only been 3 years. I am feeling so guilty for not learning more about this disease 3 years ago so that I could have spent more time with my Dad. He lives in another state so I only seen him once or twice a year. If I would have known, I could have better handled this, maybe. I'm scared and I miss my Dad.

Charlene Milligan

March 12, 2008 9:57 p.m.

Hi Ang,
My wife of 37 years died on Dec. 8, 2007 of early on set. At first the symptoms were not bad. In 1996 she stopped driving. In 2000 I thought something was wrong with her never thinking about early on set. On night I asked her what a orange was and she said something to eat. I then asked her what it was and she could not tell me. I knew we had a problem. As the the AD progressed she forgot how to talk, did not know anyone this was in early 2002. She started wetting the bed in early 2003. That is about the same time she could not feed herself. I hired my son in July of 2002 to be home with her while I was at work. We hired a Hospic to moniter her in March of 2005. She was totally helpless by that time. She could not feed, use the bathroom, or bath herself. My son did a great job with her. In Oct 2007 I quit work because I knew not one person could talk care of her properly. My son came seven days a week until she died. It is a terrible way for a person to die.

Nosnarfu9

March 11, 2008 10:48 a.m.

I did not realize i would run out of room. i have spent the morning reading all the comments here. this site is wonderful. i would gues my mother-n-law has been sick close to 10 years or more now. like i said she has not been diagnosed with early onset A.D but has the signs. can someone tell me some of the late stage symptoms. i am curious to compare her behavior and symtoms to moderate or late stage symptoms. also, we are trying to get an appointment for her but we do not have the support of my father n law or is she admitting to the problems she has. thanks for listening.

Ang

March 11, 2008 8:26 a.m.

My mother in law is 63 years old and for years has had all the signs of dimentia. I don't even know where to start with my story because it is pretty complicated. My mother-n-law use to be a very confident career oriented woman who treaseured her best friends and family. In her early 50's she up and quit her career and has held a couple entry level positions since then but never able to keep them. She has withdrawn socially from her children, grandchildren, and friends. She has no emotions toward the recent loss of her parents. She has all the symptoms of early onset alzheimers BUT here is the scary thing.... She has not been to any doctors, she is not healthy and my father n law will not take her to a doctor. He has moved her to a different town away from her sons. I love her so much and want to help her. My husband ( her son) and I don't even live in the same state. I am desperate for any ideas or thoughts that could help our situation.

Ang

February 23, 2008 8:21 a.m.

My husband was diagnosed 1 year ago with mild cognitive impairment. He has taken the neuropsyhc test for the second time and waiting on the results. They will not say if it is progressive to A.D. He is on aricept. With all of his symptons I am sure that it is A.D. He is 55 years old. We noticed a change in personality, mood and memory 3 years ago. No one would listen and kept saying that he was to young to have a problem. They said stress and depression was causing it. He is in denial. I would like to know how long before he is unable to work, drive. What am I to expect in the next few years. We have 2 daughters and they are really taking it hard. We were not expecting this in a time of our life when we were planning retirement and time alone with the children in college. I am worried about the financial aspect from all the bloggs that I read. Thanks

jm29

February 18, 2008 1:48 p.m.

My brilliant husband retired nearly 2 years ago and less than a month later was diagnosed w/A.D. We had already begun building our dream home in a lovely, but remote, small town in southeast Arizona. He is still in really good spirits and seems &quot;almost&quot; the same man he used to be, just without any short-term memory. I have recently begun to feel that he may not really have A.D. and a neurologist has suggested the possibility of Normal Pressure Hydrocephalus. We are considering having the spinal tap to perhaps diagnose this. Has anyone else encountered this &quot;confusion&quot; about the diagnosis? If it were to be confirmed, a brain shunt woud be the treatment. That really scares me. I would rather live in this not-too-bad moment than risk losing the life we have together right now. But if there were a chance...I'd really appreciate any input. Thanks.

Nancy

February 12, 2008 1:22 p.m.

My husband just turned 66. He is totally blind from an accident when he was young. Last summer her started substituting words. All the CT's, MRI's were normal &amp; his blood work was fine. He had Alzheimers testing by a neuropsychologist which didn't give him the diagnosis. It's obvious that something 'isn't right' but he knows it when he says something wrong and doesn't have any other symptoms. Any news about blindness &amp; AD and what to expect? Thanks, Jenna

Jenna

February 8, 2008 12:28 p.m.

Hi - My husband was diagnosed with early onset AD at 57 and he passed away on December 7th at age 64 - I was his caregiver until the last 30 days. Yes, it was hard but I wouldn't have had it any other way. Anyone out there who is going through this absolutely needs to join an Early Onset Support Group. You also need to see an attorney that specializes in ELDER LAW. There is a new study that I became aware of last week - go to www.science daily - this study promises &quot;instant reversal&quot; of AD - it is truly amazing!!! God Bless all the caregivers out there. Jill

Jill Buck

February 6, 2008 10:36 a.m.

My husband was diagnosed at the age of 49 (I was 46) with Alzheimers Disease, two years later they changed the diagnosis to fronto-temporal lobe dementia. Close to the same symptoms as AD. He still remembers everyone but his short term memory sometimes doesn't even last five minutes. Fortunately I had my children young and they are very supportive to me. It's been a long process so far, and for the most part feel as though other than some therapy have had to work through of it alone. His family is in another state, and rarely contacts us now. There is very little information about this diseases for early on folks, what to expect as it progresses, as well as the life expectancy. This year will be the tenth year for him. I'm in hopes this blog with be very informative for me as I read through all the information posted. Thank you very much for any info shared!!

Judy

February 1, 2008 10:03 p.m.

Pattrgal where are you? Cat and I here to help you. We both took care of loved ones with early on set.

Nosnarfu9

February 1, 2008 9:43 p.m.

I do not know if I can do this or not but can all of the care givers of early on set post comments on this page. We can probaly help a lot of folks. Go ahead and post your comments

Nosnarfu9

February 1, 2008 9:26 p.m.

Hi Pattergal.
Where are you? Cat and I are here to give you some help. It may not be a lot but you can talk to two people who have gone through what you are going through. You need to talk to us.

Nosnarfu9

January 28, 2008 11:23 p.m.

My mother-in-law, a living saint, was diagnosed with early onset at age 55, died at age 65. I can only ditto Nosnarfu9 comments. Early on, get a POA for both medical and finanacial, Living Will and DNR, if that is your and her wishes. Importantly, don't forget to take care of the care-giver, as well. As always more than one victim of Alzheimers. As sad as the disease is to all involved, it's less stressful with foresight. Unending patience with both the victim and the caregiver is never overrated. I do volunteer work with a group of Alzhiemer patients, and my advice is to remember, no one knows what goes on in their minds or how much they comprehend, so always treat them as the same intelligent person they've always been, and with love and respect.

cat

January 21, 2008 7:52 a.m.

Lisa, have your local doctor call Mayo to refer you for an appointment, or else you can just call information and get the direct number. Good luck!

Jan

January 15, 2008 3:05 p.m.

I am 53 years old and recently diagnosed with early-onset alzheimer's disease. I cannot work any longer. I want another opinion and treatment. I am desperately trying to get and appointment at the Mayo Clinic in Rochester, Mn!! Can anyone help?

Lisa

December 6, 2007 11:44 a.m.

We need some insight into to how to care for my father through and after the death of my mother, his wife of 64 years. What do we tell him? What is the kindest and most compassionate way to help him deal with this?

Barb

December 4, 2007 8:40 p.m.

This is for Pattergal
My wife just turned 60 and in the final stage of early onset. I could find little if any help for early onset. I think I could help a lot of early onset patients and the care givers of people with early onset but find it hard where to start. Do you have a living will? Do you have a POA? If not that is the things you must do now. Are you married and does your husband plan to take care of you in your home? Is your bedroom upstairs or down stairs? I think that each case of Alzheimer's is different. Here are a few of the things that happen to my wife. In 1996 she quit driving for no reason. She quit cooking because she could not remember what went in what dish. For years we had a glass of wine after dinner and one night she just let it sit there. I am running out of space and have not even started. Sorry for the spelling errors but again no spell check. Good luck I will check back and see if I can help

Nosnarfu9

November 25, 2007 9:45 p.m.

In an article in the Annals of Clinical Psychiatry, Oct-Dec; 17(4): 269-286, Drs. Frank and Gupta at the Univ. of Buffalo School of Medicine, published an analysis of 300 articles from the Nat. Libr. of Medicine from 1996-2004 about the use of anti-oxidants in preventing or stopping progression of Alzheimer's.
They concluded anti-oxidants show promise against AD, as against cardiovascular disease and cancers, and cell protection in general, and are essentially risk-free. Well controlled studies of course need to be done. This will involve a many year process.
Anti-oxidants are found in a variety of foods: green tea, pigmented vegetables, and Vitamins C &amp; E, &amp; selenium (in moderation). The highest food source is unsweetened cocoa, using artificial sweeteners and water rather than sugar and milk to keep calories, etc., down.
There doesn't seem to be a downside. Perhaps this can help. Best of luck to all.

Robert G. Schneider, M.D.

November 24, 2007 7:07 p.m.

I have early onset and am in my late 50s. I don't know what to expect or what I can do to help myself. Can anyone out there help me?

Pattergal

November 21, 2007 2:55 p.m.

Here is a quick tip which can save you expensive plumbing bills if you are caring for an Alzheimer's patient in your home. Sometimes things like bits of clothing can be getting flushed down the toilet which will clog the toilet. This means expensive plumber's visits and bills. We solved this problem quickly by going to the hardware store annd buying a &quot;C&quot; clamp which we fastened just under the flush handle on the toilet bowl. This prevented the person with Alzheimer's from flushing the toilet. It saved us untold plumber's visits, and when we wished to use the facility, all we had to do is loosen the clamp and move it slightly out of the way. When finished, we would put it back in place and tighten to snug. We never had any further cause to call the plumber. I hope this helps you also. While caring for someone with Alzheimer's disease, we need all the help we can get. I offer this tip with the hope it helps you manage things a bit easier. From Chris in South Portland, Maine, U

Christopher

November 19, 2007 9:15 p.m.

My husband is 83 and was diagnosed about 2 years ago and he is taking Exelon. I think it has helped with the agitation, however, I now realize there has been a progression into the next phase...Of course I worry about what is to be expected and read all I can everyday. I am determined to provide the best care that I can. He has been a wonderful father and husband and I do mourn the loss of a relationship. I feel lost and unsure of my caretaking ability. I try to take each day as it come and pray for strength, patience and understand. Thank you for this forum.

Theresa

November 14, 2007 8:24 a.m.

My wonderful, smart, funny, brother in law has just been diagnosed with early onset Alz. He is only 58 years old. We are all devastated, as you can well imagine. We are going through such a range of emotions mostly extremely sadness. My sister and BIL live in Washington and we live in California so there's that to contend with too. I feel so far away and want help, and support in any way I can. My husband and I are planning on relocating to Wa in about a year, but that seems so far away and my BIL is declining quickly. Early onset has a whole different set of problems and concerns to deal with. Any one else here with a loved one with early onset?

Michele

November 14, 2007 3:30 a.m.

Marion, I will pray for you. Your message made me cry because I can feel your despair. Mom has Alz, Dad has dementia, neither feel nothing is wrong and are furious with me for sending a caregiver. I'm trying to raise 2 elementary school kids. Others have suggested getting Mom into a day care for Alz. patients. Would that help you? God bless you.

Linda

November 13, 2007 7:13 p.m.

I am feeling totally overwhelmed, not only does my spouse have Alzheimer's but is now going through hormone shots and radiation five days a week for the next 10 weeks. Help

Marion

October 31, 2007 8:44 p.m.

My husband was diagnosed with mixed dementia last summer,so we've started our way down the slippery slope.He just turned 80,and is on a popular pill which treats the cause rather than the symptoms.
It's so difficult for me to believe that this is happening,as he is the smartest man I've ever known;always first in his class,an executive in his company.I'm a dependent person,and he's always taken care of me.Now I'm trying to rise to the occasion,and it's hard.I have decided to take each day as it comes,and not to think about what the future will hold.

Babs

October 28, 2007 7:23 p.m.

My husband is 83 and has Alzheimers.It started about 6 yrs. ago.For the past two years since the AD escalated, I have been able to keep him at home with me with the help of a caregiver.I have found that fish oil in liquid form from the Health Food store has helped his anxiety.I noticed a difference within a week.I also discovered Bach Rescue Remedy at the Health Food store which calms him down when he is in one of his bad moods. 4 drops in a small glass of water or on a tsp. works well. It is all natural and can be given to children or to animals.This is much easier than trying to get him to swallow a pill especially when he is in one of his angry moods - I have had pills thrown at me or spit at me. This resecue remedy can be given several times daily. We give it to my husband before he gets out of bed in the morning I am very blessed. The caregiver knows how to handle by sweet husband when he isn't so sweet. My husband also takes Aricept and Namenda.

Paulyne

October 25, 2007 5:18 p.m.

Alan, I sympathize completely. It would seem that your mom has very similar symptoms as my own (including the glaucoma) My mother is becomming quite combative. Maybe there is a reward for doing this. It's got to be the most difficult job I've ever done. Good luck to you brother.

Steve Kroll

October 23, 2007 9:35 p.m.

My mother has Alzheimer's 10and 1-half years and counting. She does not take pills so I have to crush it, seraquel and put it in ice cream. She fights me and does not want to take it. But once I tried to wean her off it slowly and she landed in NYU. She could not remain at home without this medicine. Otherwise there is really nothing on the market and most have bad side effects. My mother also has glaucoma and needs eye drops in both eyes. My father usually gives them to her with my help. He is going into the hospital for a knee replacement so I know my Mom will be more difficult then usual. We have homecare but they can not give medication and with my help my Mom has remained at home. But it is very taxing and I hope better medicinesw come on the market shortly.

Alan Block

October 18, 2007 7:52 p.m.

Except that my 79 year old wife's dementia was the result of a car accident about one year ago, my experience has been much like the others posted here. However, since she was put on Trazodone (25mg three times a day)in April her behavior and sense of well being has been very good. Her hold on a sense of security is tenuous and when she loses it a panicky anxiety attack ensues that required the use of Ativan to calm her down prior to her being on Trazodone. These attacks are now rare and only occur when her surroundings change to a degree she does not recognize where she is. We are careful about modifying her environment unnecessarily, but even when an attack does occur, we understand the cause and can shortly bring her back to &quot;normal&quot; without drugs. As soon as it is over her memory of it is totally gone. I would like to understand this better.

Judson

October 16, 2007 7:31 p.m.

My twin brother was diagnosed about 60 days ago with Alzheimers. I am 77 years of age and in good health. If you wish, add my name to any appropriate test group that may exist.

Larry ldonlin@msn.com

October 13, 2007 4:59 p.m.

My wife has Alzheimers, diagnosed 2 years ago. She still lives at home and we both are active within the local Alzheimers community, this in northern New Zealand. I understand that more women than men contract Alzheimers and was struck by the fact that few husbands give their stories in the blog. While the problems are pretty much the same for all of us it would be great to have more husbands submitting their stories. I am 13 years younger than my wife and still work in my printing business. We take one day at a time and try to keep reasonably active socially both within the Alzheimers community and elsewhere. One gets much verbal support, of course, but the understanding of those who have not experienced the journey we are on have very little concept of the day-to-day challenges/issues we face. Come on men, let's hear from more of you!

Malcolm

October 13, 2007 12:33 a.m.

My husband was diagnosed with AD in 2002. He has done quite well until recently. He has become physically weak and has forgotten how to do many things. Most of the time he thinks I am someone else. I help him dress and it is getting more difficult. I am constantly looking for clothes that are easy to manage. He has trouble understanding what he is supposed to do but once he catches on, he does what ever I ask of him. The last couple of weeks he has been getting up 3 and 5 times a night to go to the bathroom. I get up with him to see that he gets to the toilet in time or else I'm cleaning up the bathroom. I took him to see his doctor today and find that he has a prostate infection so is taking antbiotics. I hope this will clear it up so I can get some sleep. How have others coped with frequency at night? How did you manage? Any help will be much appreciated.

teresa

October 9, 2007 8:00 p.m.

I read the letter from Virgie Mitchell. My husband has the same problem, plus I had to put him in a home. There was a woman with the sex problem &amp; they were found at least trying to have sex. I can't get that out of my mind. He is on aricept, namenda &amp; ativan. Can these cause them to be over sexed? He has always been faithful, a good christian and I can tell he does love me. I did not see the answer to Virgie's questions. Where do I find the answers.

June

October 7, 2007 8:19 p.m.

After I shower my 92-year-old mother, who has Alzheimer's, head to toe with suds and rubbing, I massage her face to toe with oil. Her nervousness subsides, her circulation improves, her skin looks better than it looked 20 years ago--no purple or red sections. Read about long, slow stroke massage and the benefits. We both love the experience. She lets the oils soak in afterwards, totally relaxed. Our best conversations happen after these sessions when her focus is heightened. She says it makes her feel light and free.

k

October 6, 2007 8:10 p.m.

Shirley, I have a friend who went to work one day and when she came home her husband couldn't walk.
My husband has Lewy Body. This past week he has been extremely tired, bad head aches and not sleeping well. I will take him to the doctor on Monday to see if he has upper resporatory problems or a UTI or if it is dementia related. He has done so well for so long that his past week has been a little frightful for me. It seems odd to hope your husband is physically ill, knowing the other option is dementia related.

Sharon G

October 5, 2007 8:12 a.m.

One thing for sure is you can't judge what your loved one with AD will do by reading what other AD people do. Some days are good - some not so good - but like shirley - i have found musis is soothing for them - dad just loves the &quot;oldies&quot; like lawrence welk, guy lombardo, etc. and old hymns. He can't concentrate enough to watch tv - Love this site - thank you for it - and bless all you caretakers.

jackie (jc)

October 5, 2007 2:28 a.m.

Well Saturday my husband was unable to walk on his own. Boy my world changed my daaughter was here and she helped me for 4 days helping get him out of bed. We called hotspice and had him checked to see if I could get some help. They came and he will be in the program starting today.
This Az changes so quickly and affects the whole family. Reading the bible to my husband helps calm him down and playing music.

Shirley

October 5, 2007 1:55 a.m.

WARNINGS
Increased Mortality in Elderly Patients with Dementia-Related Psychosis
Elderly patients with dementia-related psychosis treated with atypical antipsychotic drugs are at an increased risk of death compared to placebo. SEROQUEL (quetiapine) is not approved for the treatment of patients with dementia-related psychosis (see BOXED WARNING).

gord

October 5, 2007 12:24 a.m.

Is a psychiatrist prescribing for your mother, or only a family doc or internist? Ativan is likely to adversely affect memory -- so it can &quot;backfire&quot; when the anxiety is because of poor memory. Seroquel increases death rate in the elderly. The Paxil or one of the other SSRIs (e.g. Celexa, Lexapro) is probably a good idea, and lots of reassurance and structure. If she is not seeing a well-qualified psychiatrist, it is time.

Dr. Burnie

October 3, 2007 2:39 p.m.

My mother was diagnosed with Alzheimers about 3yrs. ago. For the past 2yrs. she has been suffering from alot of anxiety and I was wondering if anyone else has experienced that with their loved one. She has been taking seroquel, ativan &amp; paxil and nothing seems to work. If any thing, every time they change dosages she seems to get worse. Does anyone have any suggestions.

Mary

October 3, 2007 12:24 a.m.

http://www.healingwell.com/library/alzheimers/oboyle1.asp
The info on this web site has been a big help to me with my husbands agressive behaviour
He is in the middle stages of Ad and is 68 years old. He is on no medications as yet.
He was quite aggressive and verbal threats for 7 months, but now it is not quite as bad.

dottie

October 2, 2007 7:57 p.m.

My aunt, 102 years is in the late stages of AD, she has been in assisted living for 2 1/2 years. A few months ago she started displaying agressive behavior. It seems to start when she does not want to do what is asked of her or she wants to have her way about something. These behaviors have escaleted to biting spitting, scratching and verbal threats. She is uncontrollable and at times she has to be sedated. Is this a part of the disease, what can be done to lessen the frequency of these outbursts? She takes seroquel, which has recently been increased. She is a very small person, about 90 lbs. and about 4ft. tall, owever, when she becomes enraged her strength is that of a 200lb. man Is this normal, and what can be done for her.If this is a stage of the disease, how long does it last?

Bev

October 2, 2007 5:18 p.m.

Virgie Mitchell, think of dementia as an umbrella. One of the spokes is AD and another spoke is Lewy Body. AD and Lewy
Body can affect the same person. LB patients have a slow gait, maybe bent down some when walking. Hallucinations and horrible dreams can happen. Parkinsonism changes are found in LB patience, along with Rem sleep disorder. There is a difference in AD and LB when it comes to behavior meds. There are some you can't give a LB patient, as they can cause severe side effects or death. Please do a google search on Lewy Body as there is valuable info in some of the links. After getting some more info from the computer if you still think that he might have LB see a good neurologist and he might be able to come up with a correct diagnosis.
Dr. Graff-Radford is a fantastic doctor from Mayo Clinic in Jacksonville.

Anonymous

October 2, 2007 1:41 p.m.

To Sharon: Thanks for the suggestion of tonic water in the vodka bottles. It is on my grocery list. Will let you know if this helps.

Nancy

October 2, 2007 1:02 p.m.

My mother is in the late stages of AD. She has gone from a 140 pound woman to a mere 94 pounds. She only eats what we poke in to her. Mom is constantly in motion from the time she awakens in the a.m. until she goes to bed at night. She has just lately begun taking naps during the day. No one knows how she is able to keep going (less that 400 calories of food a day). She keeps everyone busy chasing after her. She is still at home with my father (what inspiration to us all); however, they do have a helper 3 days a week plus Hospice--they are wonderful. My mom has not known us (husband, 5 kids, 18 grandkids, and 2 great grandsons) for quite a while, but occasionally things seem to click only for a very brief amount of time. The smile you might get is priceless. I feel for all of you that are just now beginning the path-----it is difficult and you can't explain or prepare anyone for the journey they will embark on with their loved one. Love them and cherish your time.

Janet

September 30, 2007 6:58 p.m.

My husband has been diagnosed with Lewy Body and I am so sorry your correspondent cannot find any info. Just Google Lewy Body Journal and you will find many links. The DLB Association is a Great Brittain association doing research on DLB.If your loved one displays symptoms of Parkinsons and is not typical of Alz, it probably is

Babs

September 30, 2007 5:47 p.m.

To Dayleah: You raise the question of when to sit down with your Dad and face facts, I would suggest that you have a geriatric specialist appointment set up to see your Dad and assess him and have the Doctor tell him at the appropriate time. Some people want to know and others really don't because they already know in the back of their mind that something is not right. When my husband was told, he was still quite &quot;with it&quot; and functioning and driving. He started to save sleeping pills (unknown to me) and then one day tried to commit suicide because he understood what was ahead of him and said he would rather be dead. I came home early from an appointment and found him in time. He has moved beyond this stage now and thanks to drugs lives a happy life in his own way without a care in the world. I do all the caregiving and he is still at home for now. I hope this helps you.

Kathleen

September 29, 2007 7:53 p.m.

My mom has Alzheimer’s and is totally dependent on others for everything. My Dad takes care of her at home. The things she knows how to do are: shut and lock the door; close the blinds; get a bottle of Boost from the refrigerator and can dress herself fairly well. She has trouble following verbal instructions. I have found that imitating what I want along with verbal instruction is helpful. For example: I will put paste on her toothbrush and tell her to brush her teeth. When she can’t figure out what to do, I act like I am brushing my teeth. She generally catches on and can get it from there. As far as eating: When I place her plate in front of her she says “I don’t want that”. We used to try to coax her to eat when generally made her angry. I have learned to say “Well, then don’t eat it. But I am going to leave it there until I am finished.” She’ll say “OK”. Within a minute, she’ll start eating. She doesn’t eat a lot, but thankfully she drinks plenty of Boost.

Terri

September 29, 2007 5:45 p.m.

My husband was diagnosed with AD in 2003. He is on aricept, namenda, exelan, and zoloft and serequel for awile. He thinks he can still perform at sex but he can't. He doesn't realize that he can't and wants to keep trying. It is about to do me in.
Also, someone mentioned Lewy Body. What is that. I have tried to bring it up on my computer but for some reason I am shut out. I wonder if my husband might have it. There are times when I think if I can't have some free time, I will start screaming. When we drive- I drive-, he is constantly rubbing, patting, squeezing my leg. He gets upset when I move his hand and say &quot;no&quot;. What can I do? Help.

virgie mitchell

September 29, 2007 1:55 a.m.

Help!
My family has a strong history of early-onset alzheimers. Early signs of Alzheimers usually shows up in the mid to late 40's and death usually occurs in the early to mid 60's. My father is 44 and I am starting to see some red flags in his behavior. He has always been afraid that he too will walk the path of his ancestors and he is really sensitive about the issue. He gets upset if we even mention it. This is obviously a problem since we would like to start treatment as soon as possible to maintain quality of life as long as possible. Is there a way to do this without upsetting him? Should we just tell him? He is still in the extremely early stages so he can understand and remember what we are saying, goes to work and does well, and can function well everyday (as long as it's part of his daily routine). I'm 23 and have no idea how to handle this so any advise from how to encourage him properly to doctors and tests would be wonderful.

Dayleah

September 28, 2007 9:37 p.m.

Oops! About my fibromyalgia I meant to say that I will be limited to some of the care that my husband will need. I tire easily and need rest sometimes during the day. I am 5'1&quot; and he is 6&quot;1&quot;.
He is on Aricept, Namenda, Zoloft, Seroquel for behavior problems, Trazadone for sleep, Clonipin to help control his nightmares (part of Lewy Body) and Mirapex for restless leg syndrome. He also takes blood pressure meds and cholestrol meds. He sure keeps the pharmacy busy -;).

Sharon G

September 28, 2007 9:25 p.m.

Angela, thanks for starting thei blog. This is my first time being on a blog. I have enjoyed reading the posts and plan to be here often. My husband was diagnosed with AD in 1997 at the age of 51. He is now 62. He was diagnosed in 2003 with Lewy Body. He is still doing fairly well but is slowly slipping. We were both in a support group together. Sadly to say, the group felt the need to stop the diagnosed group in Jan. 2007. My husband still misses the group and craves to find another group that will be for him, as well as me.
I have fibromyalgia which will limit some of the latter stages of the disease. I do have family close by, but I don't want to burden them as they have their own families, jobs, etc. To Don Felipe, if you would like to correspond by email with the husband let me know. Mayby the two of you can make your own support group.

Sharon G

September 28, 2007 5:27 p.m.

Nice to see this blog.I am from Karachi,Pakistan. Disadvantage of having Alzheimer's here is that its a third world country and so cost of medicines is hardly bearable by most patients and then a large number of ppl being uneducated dont consult doctors considering it to be normal aging. Advantages are that usually there is combined family system (like children usually but not always) live with their parents so old ppl are not left alone during the vulnerable years.
I am trying to organize a support group at the local level for people with alzheimers. The web address is alzheimerskarachi.googlepages.com. If there are any visitors over here from my part of the world, they wud be more than welcome to join.

Dr Latif

September 28, 2007 12:51 p.m.

My husband is 83 and has AD. A couple of months ago I finally was able to bring in a companion to spend time with him about once a week. My husband balked at first, but I reassured him this was a companion. I told him I understood he didn't need a babysitter (yes he does) but I would worry about leaving him alone. So as a gift to me, he agreed to the plan and now really enjoys the visits with his friend. They play billiards, chat, watch tv together, while I go for a long walk, read a book at the park, or run errands.

Marie

September 28, 2007 4:26 a.m.

NDAUNTIE - thank you for responding - and having someone come in once a week sounds good to me - i just worry about getting him upset and hurting his feelings. so this is the small stuff, huh? we deal with confusion, forgetfulness, moodiness, extreme boredom - he won't play games, go to senior citizens, etc. but all in all, he's pretty wonderful - gotta love him.

jackie (jc)

September 27, 2007 1:57 p.m.

Hi Susan,
I visit at least twice a week, sometimes more depending on what is happening there. There are often activities organized and I try to go to some of them with Dad, because it helps to get him out of his room and might make him more interested in participating. It doesn't always work but he enjoys the visits. We talk on the phone several times a day and I always call around 9 pm to say goodnight. He doesn't feel abandoned, but he still feels sad that my mother is gone. The worst thing is when he forgets that she passed away (he doesn't remember anything about the hospital or the funeral) and then I have to tell him and it's like the grief is fresh again. Once he phoned at 10:30 pm and asked if Mom was cremated. He wanted to be buried with her and he didn't remember what had happened. I didn't get much sleep that night. It's much better now that more time has passed.

pam

September 27, 2007 12:13 p.m.

To Nancy: Even before my mother was diagnosed with Alzheimer's we started noticing that the liquor cabinet still had the bottles in there but they were empty. Then she came to live with us, we found her up at all hours of the night and early morning drinking straight liquor from the bottles. We moved the liquor to another part of the house. We then noticed that the bottle of tonic water in the refrigerator was empty. After some thought we realized that she thought tonic water was booze. So we kept the frig full of tonic water and it disappeared on a regular basis. Would filling vodka bottles with something like tonic water help? Would he know the difference? Certainly can't hurt to try. Good Luck.

Sharon

September 27, 2007 10:42 a.m.

It seems there a lot of us out there, that are dealing with Alzheimers in loved ones. It seems that there's a need, to express yourself more completely, and have feed back with your issues. This site at Mayo Clinic is nice, but there are others available that may be of more help. They are:
http://health.groups.yahoo.com/group/AlzheimersCaregiving/
http://health.groups.yahoo.com/group/mymotherhasalzheimers/
http://health.groups.yahoo.com/group/alzheimers/
http://health.groups.yahoo.com/group/Early-Onset_Alzheimers_Caregivers_Group/
These are but a few, of the groups that are located at yahoo. They are free, and you need but to join, to get involved in any of them. I hope this helps. I don't mean to step on anyone's toes with this, but to suggest other sites that may also provide help to us. Good luck.

Randy

September 27, 2007 10:04 a.m.

Jackie (JC) don't sweat the small stuff! I learned the hard way with my mother. The staff @ nursing home told me that when people are older they don't need full baths every day. Get some adult wash/wipes for underarms and private area. My mom gets a bath 1xweek and she does just fine. It was a battle at first to get her to do just the 1 x week! Hang in there! They also figured out that she was better with different people. Maybe an aide could come in 1 or 2 x week and give him a quick bath.

NDAuntie

September 27, 2007 9:06 a.m.

A couple of specific things -- my parents-in-law wanted to do the same thing that someone else mentioned, moving back to a place they had lived in 50 years before. In their case it was easy to stop them, since they would have needed passports to go back to Britain, and they didn't even remember that they had them! -- I have also heard about the problem of Down's syndrome adults being liable to get early-onset AD - and it does sound very hard to deal with. -- another comment is about the site - it is very annoying to deal with a space that only lets us post 1000 characters - o.k., since it's an obvious limitation - but also refuses to allow spaces between lines or even new paragraphs. -- so I'm adding dashes to indicate separate thoughts. Seems to me that an important aspect of communication is to be able to separate ideas - and we all need to prove to ourselves that we are able to communicate properly!

Leslie

September 27, 2007 7:59 a.m.

I have scanned a lot of the comments here and will have to read again, and try to comment on a few specific things I know about. I'm certainly not a professional, but I've had a lot of experience - much more than I'd like, already.
Both my father- and mother-in-law have had AD - plus other family and friends. We are of course concerned about how it is inherited, and what kinds of preventive steps are available.
He had a very quick course of the disease, less than a year, but she has had it for at least 8 years and is still not in a terminal stage.
But we also have a friend who lost her younger brother to it - she is 4 years older than he was, and is still mentally sharp, though she is beginning to have a few physical problems.
So the main thing about this illness is that it is impossible to predict what will happen - age of onset, how fast a decline will be, or who will end up with it.
I'm hoping that the Mayo people will give us an idea of what will happen to help in the future!

Leslie

September 27, 2007 2:53 a.m.

My father died of AD at age 94, my mother died at the same age with severe dementia. My sister is now 75 and is in midstage AD. I am at 59, and realistically very concerned about my own future. Seems like I am always dealing with some memory issue. I am divorced, live alone and am completely self-supporting. I need to be able to continue in my intellectually demanding profession until I am 65 to qualify for retirement. I worry about this often and do not want to be a burden on my children, who are much too young to have to deal with a parent with any form of dementia. I take a couple OTC drugs, including a lot of Omega 3, to deal with brain function. My doc has suggested that I also considered Aricept in about eight years as preventative, although that would be out of pocket. Would love to hear from others in my situation--how you deal with the fear and isolation.

Anne

September 26, 2007 10:10 p.m.

The comments and suggestions on this site are so encouraging. I've been caretaker full time of my dad for 3 months now - and my sister and I shared helping him for over a year before that. If anyone can give me advice on how to get him to take his baths and shave I would love to hear from you - He almost seems to have a fear of water.

jackie (jc)

September 26, 2007 7:40 p.m.

My mother is in the middle stage of AD. She thinks people come in the house while she is sleeping and takes things from her. My aunt, her sister, also has AD. My mother calls my aunt to tell her people are coming in her house at night. My aunt then gets upset and calls me. I tried to assure my aunt that its the Alzheimers that's telling my mother that people are coming in the house at night and that she is safe. My mother misplaces her things in the house, so if she can't find something she blames it on people that she imagines coming in the house at night. My aunt nor my mother will accept the fact that they have AD. It is a very cruel disease for people to suffer. I have learned to deal with it, but people that don't have a love one with the problem don't know what its like. I do know that I have become a stronger person. We all have become stronger as caregivers of our love one suffering from AD. We all have no choice but to survive this ordeal emotionally and learn to cope.

Debbie

September 26, 2007 7:27 p.m.

Although I do not have a family member with Alzheimer's disease. I do work at a facility with 24 wonderful people that have it. I consider them my family. There is a wonderful website that has lots ofs of information on how to &quot;Create moments of Joy&quot; with people with Alzheimers. It is www.enhancedmoments.com This is what we do our staff training from. It helps to shed a lot of light on some of those tuff days. I also wanted to comment on those of you that do not have a support group in you town. How about posting an ad in your local paper. Even if you don't have a professional to run it you alteast have someone to talk to face to face. I hope this helps some!

Tina

September 26, 2007 5:21 p.m.

My wife is in early stage of Alzheimers and I am the caregiver. Her age is 78.The onset of her AD seems to coincide with a major relocation of homebase and her having a mild stroke.I also recently noticed tha she is more agitated around the time of full moon.Would appreciate some input. Thanks very much

roboro

September 26, 2007 5:16 p.m.

Caregiver's Bill of Rights
Providing care for a person with Alzheimer's disease is often a stressful and demanding ordeal. It is important to remember that caregivers have human needs and emotions. They must care for the patient as well as themselves. The Alzheimer's Family Relief Program's &quot;Caregiver's Bill of Rights&quot; offers some tips for coping.
IT IS ALL RIGHT TO:
* BE ANGRY. Turn this energy into positive action. Clean closets, take a walk, talk with someone.
* BE FRUSTRATED. Stop the present activity, take a deep breath and begin a different activity.
* TAKE TIME ALONE. A favorite chair in a quiet room, a trip to the store or a few hours out with friends.
* ASK FOR HELP. Explore family, friends and local agencies for resource services. Most doctors' offices and clergy can make referrals.
* TRUST YOUR JUDGEMENT. Relax, you are doing the best you can.
* RECOGNIZE YOUR LIMITS. You are a valuable person. Take care of yourself, too!

Rosa

September 26, 2007 5:14 p.m.

I agree with Mimi that in the early stages they are grumpy.My husband became so frustrated that he could not do the tasks he used to do. For the longest of time he was in denial about his disease, and blamed everything on me. That i was the one who had alzheimers, and hiding his tools etc.I think he has accepted it now just recently and he seems to be more mellow. He was diagnosed in 2002.
I have joined an alzheimer support group, which meets once a month. Sometimes it helps to talk to other people who are experiencing the same feelings, frustrations and challenges.
In the beginning of my husband`s illness I did not have much patience, but I have learned so much since then.I just have to keep reminding myself that is not him talking, it is the disease, and not to take it personally.
Providing care for a person with Alzheimer's disease is often a stressful and demanding ordeal. It is important to remember that caregivers have human needs and emotions.

Rosa

September 26, 2007 3:57 p.m.

My husband is very hard to wash. He is scared
to have my hands near his face or body. Does anyone have any suggestions on how to take that fear away. I dread bathtimes.
Thanks

Shirley

September 26, 2007 2:43 p.m.

So glad that Angela started this site. Just reading that what other people are going through really helps. I have an 82 year old Mother who was diagnosed in Feb. with dementia and Alzheimer's Disease. I sold her home in FL after she had been with me and my husband for over a year. We knew she could not be alone anymore. I put her in an assisted living facility in June of this year and she has adjusted very well. Seems like I am the one that is taking the changes harder, but I know she doesn't realize the real world anymore and I am sure that is so difficult and frustrating for her not remembering. She is on Razadyne and we could tell a big difference once she started taking the medication, but now confusion is setting in more in the evening it seems. She also has macular degenerative, a pace maker and diabetes. I have so enjoyed reading everyone's experiences with this horrible disease. Good to know you are not alone. Prayers to all who are suffering and those who are helping.

Monnette

September 26, 2007 2:15 p.m.

hello to everyone. my father 88 yrs, has alzheimers for 9 yrs. my mom died of alz. 10 yrs ago. up until 8/11/05 my dad lived w/me. my sis and i got him into a catholi charities not for profit home in la. i did a lot of research on homes, medicare, medicaid(medical in calif) and the medicare web site on line for facts and myths.
dad hardly recognizes me any more and is in the last stages.
ifeel for all of you since i have been there myself. i learned that after my dad went into the home he received better care by health professionals and quite frankly it was a relief...its been two years and i still have some guilt but he is very comfortable and loved. thats what i want for my dad.
love to all of you...be nice to yourselves
kevin

kevin j burns

September 26, 2007 1:37 p.m.

my husband and i have been married 64 yrs. he was diagnosed with dementia 2 yrs ago. i am sole caretaker. ihave arthritis, osteoposrosis. and some days it is very difficult to cope. also have both knees replaced and both hips replace. my husband knows he does not remember things as he should, but he has always had a good sense of humor and we joke about things he does. he attends day care, which our community awarded me with as respite. my husband enjoys the bus ride and all the people he can entertain at the &quot;bingo place&quot; he is so happy when he wins a prize to bring home to me. he has started to hallucinate at nite, yells and talks out loud and even curses, which he never did before. the doctor attributes it to the medication. it keeps me awake all nite, then the next day is very difficult.I know that worse days are coming, but try to see both sides of the illness.

Lorie

September 26, 2007 1:13 p.m.

Both my mom and my husband have Alzheimers. I was able to care for them at home for 11 years. In 2004 I placed my mom in a care center. She had a secondary infection due to her diabetes and was hospitalized and that time it was recommended that she be admitted to a care center.It was then I realized how much stress I was carrying.
I used all our financial resources to keep them both with me, but eventually upon foreclosure of my home I was forced to admit my husband to a care center.
I miss them both very much and spend as much time as I can with them at the care center. I especially miss my husband, my best friend. If I needed to do it all over I wouldn't change a thing.
I am still healing from the financial and emotional stress and day by day things get better. It feels good to tell my story. Thanks for listening!

Sue

September 26, 2007 12:56 p.m.

This is a great site even if questions dont get answered, it is a place to vent as a caregiver. My wife was just diagonsed with early onset AD at age 40. She has similar behavior mentioned previously-closing the blinds during the day, flushing the toilet repeatedly, turning on the air cond when it is 65 deg outside, ect. We had genetic testing done and they discovered she has the APO e gene but I thought that was consistent with older age AD so I'm not sure if its AD or something like FTD. Any insight would be much appreciated. I am also running into a lot of roadblocks on the financial end but I am hoping and praying disability will come through as she can no longer work.

Scott

September 26, 2007 12:24 p.m.

My father had the beginnings of Alzhiemers when he died at the age of 84. He also had other health problems so the last year of his life we watched him slowly slip away from an active life to a silent shell of a man. It was so hard to deal with. I recently had some of the same symptoms (memory loss, stress incontinence, unsteady walking), but since I am only 54 my doctor did an MRI and discovered I had hydrocephalus. I now have a shunt from my brain to my abdomen and hopefully I will recover completely. Don't just accept the diagnosis of Alzheimers until you have been examined by a doctor, especially if you are still fairly young. My uncle died of dementia when he was in his fifties (we thought it was alheimers) but now I wonder. I miss my dad (the memories of when he was healthy) but I know he is looking down from heaven and in perfect peace. -Gayle

Gayle

September 26, 2007 12:21 p.m.

My mother had Alzheimer's. My father and I were able to take care of her at home.
1. To Allen Hick. Change your normal routines. If you first put on your right shoe, put your left shoe on first. If you put both your socks on before your shoes, put one sock and one shoe on, then the other. If you are right handed, do as many things as you can left handed, etc. Be inventive. This grows new connections in your brain and sometimes can at least slow down the process.
2. For caregivers, family, etc. In the early stages patients might be VERY grumpy and hard to handle. Sometimes this is because they are frustrated that they can't think and do as they used to. With Mom, once she was diagnosed and we made sure she understood what was going on I told her to just sit back and enjoy the ride. We would take care of her and the house. After that, she was a pussy cat. Remember that the weird things they do, they can't help. Show them love and that they are not a burden. This makes it much easier.

Mimi Gibson

September 26, 2007 10:53 a.m.

The mist falling soft on the footath No light shines to illumine the way. The wind makes the sway of the willows. A dance for those.lost and astray.In the dark of the night go the lonely. Just hoping for some ray of light. Their search
in the day disappointing. Broken hearting they search in the night.The darkest of night before sunrise.The saddest of times brfore morn. We wait with great anticipation. With a new day a new hope is born. A ghost of a smile on her soft lips, Her eyes says she knows who I am
I tremble with great anticipation. For my mother is,temporarily, found. No words do we,need to exchange now. We share with the love in our eyes. Her memory returns-our tears glisten. What a, momentarily,
pleasant surprise.

Horace

September 26, 2007 10:40 a.m.

I also am hoping we will hae more preventive ideas come up here about AD.
want to thank Mayo clinic for sponsoring this!!! since i have an uncle who died of AD I also wonder if I may be in line later, he was in his 80's when it hit him. He had to be in a nursing home and it was painful for us to see him decline.

Eviana

September 26, 2007 10:26 a.m.

I am 80 years old. My mother died at 91 with Alheimers. Her sister died at 96 and her brother died at 95, both with Alheimers. I find that I am getting forgetful and have trouble remembering events and things that happened. I am so afraid that I will get Alzheimers. Is there anything I can do to prevent it or delay its onset.

Allan Hick

September 26, 2007 10:16 a.m.

My 69 year old husband has early stage Alzheimer's. He has had memory problems for about 10 years and has been on Aricept and now is in Razadyne ER. It has probably helped, but gradually he as less short term memory or becomes obsessive about partly remembered appointments. We have a good life, but it is being taken over by Alzheimer's. We have been fortunate to find
a support group for early stage and he is taking part in a research study. I feel my life is all about Alzheimer's and that can get to me.

Mary

September 26, 2007 10:12 a.m.

this is wonderful....my husband is now 80 &amp; was diagnosed a couple of years ago. I have joined a local Caregivers Support Group &amp; it is most helpful in finding help for the patient ...but at this point I need the help...I just don't seem to have the patience and compassion other people have. He is in pretty good health physically and sometime is quite lucid...someone mentioned her husband continually pulled down the shades...I just came home from
getting the car fixed &amp; found a similar
problem...curtains all tied up...I lost it
to myself..he was out&amp; I had pulled myself together before he got back.I know he doesn't do it just to annoy me and sometime I sound more demented than him. I am 73 and still work a couple of days a
week which is my salvation...I think though I will have to give it up soon..where I am now doing all of the things, ie the car, home maintenance etc that he always did. I know compared to most of you I have little to complain about but I had to vent

Theresa

September 26, 2007 9:28 a.m.

My mom (84) has dementia and this is such a hard time for me. Mom lived with my husband, 3 kids and I for 30 years while my kids grew up. It was a good arrangement after my dad died suddenly. But over the last 10 years her habits became a challenge to deal with, and no one understod what it was like for us. Now she lives in an intermediate care facility and is very sad, angry and confused. For a long time she blamed me for not letting her live with us anymore, but now she just talks constantly about wanting to die, killing herself, and cries all the time when I am there. She has no short term memory and so many unattractive traits have emerged, racism, sexual talking, cruel words.
I know now when I lok back that mom had signs of this disease many many years ago, but I was likely the only person who really saw them, and I always thought that it was part of her personality!!!
Your experiences will comfort me, I know. Thanks
Merle

Merle

September 26, 2007 8:49 a.m.

Well I am glad I have a site to visit. My husband was dignosed a year ago . Since then he has to taken to the bathroom he can't find it. He is wearing Depends. I have to help him up and down,dress him and shave and wash him. We are so upset as a family that everything is happening so fast. I finally quit shaving him the old way and got him an Electic razor. What a blessing that has been. It was so haard to get him out of a dining chair I bought him a pub table and barstools. What a blessing.
Thanks for a place to talk.

Shirley

September 26, 2007 8:24 a.m.

My husband and I are caregivers to his mom who has dementia and is 92. She has been living with us for 12 of our 13 years of marriage. Her dementia is severe, she cannot communicate nor feed herself, has no bowel control. She still walks with assistance so she is not bedridden. For the last 8 years my husband stays home and cares for her full-time, while I work. I often feel as if we have put our lives on hold to care for her and although I do not regret it and would not have it any other way but for her to be at home, I cannot help but feel like I have been cheated in some way. We do have some assistance now since she qualifies for hospice care, but respite care is still an issue because my mother in law does not deal well with new people so leaving her with &quot;strangers&quot; is not something we can do. 2 yrs ago we moved to another state for job related reasons so we don't have family support here. I don't expect an answer, one does not exists, but sharing my thoughts helps. Than

Miriam

September 26, 2007 8:06 a.m.

Sunil S Chiplunkar (entry below) brings up an interesting subject-prevention. As each of us see the declination of our loved ones, am I the only one that is experiencing fear? Is AD a genetic aboration? Is it our destiny? What can be done to minimize our AD risks? We are basically the first generation of family caregivers involved in this Alzheimers phenomenum. Why the epidemic?

Anonymous

September 26, 2007 7:13 a.m.

This site has been very informative and helpful - my question is - I need to find a way to get my father to bathe and shave. He is 92 and has ahlzeimers of the dementia type. Since we have moved in with him - 3 months ago - he has only had 4 or 5 bathes and goes for over a week without shaving - and it is such a chore to get him to do those things.

jc

September 26, 2007 6:47 a.m.

My grandfather has Alzheimers. It is, as my mother, a nurse who used to take care of Alzheimers patients, the &quot;Long Goodbye.&quot; He is 91 years of age and is still aware that he has this, which can be very frightening. Fortunately, my grandmother doesn;t bear all of the burden, as my father is the oldest of seven very loyal children, but, it is taking a tole on her as he is still at home. They have a wood stove. Recently, he has taken to burning just paper in it and, once, he tried to use a vaccuum cleaner fo &quot;get the fire going faster&gt;&quot; Needless to say, the stove will be removed. I am afraid that he has reached the point where he needs to be placed somewhere where he will be safe, and where he won't do something that wil harm my grandmother. ( My grandmother is not my biological grandmother. She is 13 years younger.

Kristine Atherton

September 26, 2007 3:32 a.m.

There is something very much under-researched about lifestyle and its impact on development or onset of AD/dementia. I think vegetarianism, nonsmoking and abstinence from alcohol consumption, and Yoga/pranayama help avoid dementia in old age. Some serious research on the above parameters is necessary and a healthy lifestyle should be encouraged by the Govt., and other organizations.

Sunil S Chiplunkar

September 26, 2007 12:33 a.m.

My husband had a stroke at the age of 62.When he had an MRI, it showed tangles and plaques on his brain. He was diagnosed with vascular demenita and alzheimers He is now 67 years old.In the past year he has been going to an activity center three times a week. The handi van picks him up at 9am and brings him home at 4pm. What a wonderful break for me, and he really enjoys it.
He is in a wood working activity, mainly sanding. He enjoys the fellowship with the other seniors in the nursing home.
He has gone through so many different phases. The agressiveness and the agitation has now somewhat subsided, so has the verbal abuse. We just celebrated 45 years of marriage. He now is experiencing hallucinations and delusions.
He was on Aricept the first month after being diagnosed , but he broke out in hives and had to stop the meds. At the present time he is only on blood pressure pills and a good multi vitamin.There will come a time he will need medications.

Rosa

September 26, 2007 12:26 a.m.

My 78 year old husband was diagnosed with Alzheimers about 4 years ago by a neuropsychologist who did several hours of testing on him. He was on Aricept but it was too hard on his stomach, so they tried Lexapro - same thing. He had a stroke aboout 6 weeks ago which affected his left side, but they were able to give him the clot buster medication and it worked wonderfully well. He was in the hospital for 8 days and has recovered well physically. Now he is on a different antidepressant, and I see no benefit at all with it. So they want him to see a psychiatrist and he thinks that we think he is &quot;crazy&quot;. Home health was here today and assured many times that we don't think that but that he needs some meds to alter his moods so he is happier. He is so horribly crabby and demanding of me and told daughter Sandra that he talks that way to me because that's what I deserve. I am &quot;running on fumes&quot; here. Does anyone know of an effective med that I could suggest to

Marlene

September 25, 2007 10:28 p.m.

I have an adult family home . My client
has an AD. Her first year living in my home care was very challenging. I cried and wanted to give up. But because of my understanding, being patience ,i give time and knowing her helps a lot. She is combative, agitated, wanders and hardheaded. But the other side, I feel sorry and sad. Her son brought all her pictures when she was young. Imagine, a normal outgoing person. A loving wife and a mother. They are human being, needs love and be loved. they are still important to us. I care and I make her laugh and happy.We take her almost every weekend to the restaurant.
They experienced depressions too. I told her son come and visit her because he is only the person she knows ....for the rest of her life...and she love...!

July 63

September 25, 2007 10:18 p.m.

Pam - thanks so much for your encouraging words. I am hoping my Mom will adjust, but I have my doubts. I too cry easily. I am fortunate to have a wonderful aide with my Mom who communicates with me numerous times during the day. They are putting her on Sroquel to help calm her. I feel so badly watching her suffer. How often do you visit?

susan

September 25, 2007 10:11 p.m.

How do you deal with siblings who fight over the care of their 83-year old mother with AD? My husband's sister is in denial that their mother is declining, and consequently prevents Mom from access to the treatment and services she needs and is entitled to receive. Any suggestion of changing the present situation is met with screaming, ranting and raving. We want Mom to stay at home as long as possible, but she does need extra help. Mom is passive when sis-in-law is around, but seems open to getting help (life alert button, light housekeeping, meals on wheels, adult day care, etc.) when Sis is not there. Mom has fallen twice in last three years and broken bones, but still Sis insists that status quo is OK. Mom doesn't even have a walker--she will only use a cane! The case worker from insurance company said she can't force someone to accept services if they want to turn them down. We are so frustrated! Help!

Mary

September 25, 2007 9:56 p.m.

I am so glad to see this blog. It's late tonight and I'm dead tired but I'll be back. I am the caregiver for my 82 year old husband who has dementia and Parkinson's disease. I have so many questions.

Marge38

September 25, 2007 9:24 p.m.

What worked with us: Don't try to &quot;reason&quot;; do not argue; don't give choices. DO look at pictures, listen to familiar music, watch parts of old movies. What ever the person wants to talk about, just go with the flow and have a conversation even though you don't know what it's about!!!

Bo

September 25, 2007 8:53 p.m.

My Dad was caring for my Mom with dementia. He was trying to teach to eat over the table, change her robe, etc. and they woould argue. I explained to him that he might be right, but Mom is not going to remember this in an hour or so and he needs to relax and not get excited that she can't &quot; get it &quot;. He died after a 3 week battle with an agressive cancer. This left me with getting 24/7 in home care for Mom. After 10 months she got so bad ( 3 rushes to the hospital in 2 weeks ) that I had to find a nursing home. Things keep getting worse. I want my Mom to have no pain and be comfortable. I have had to meet with the home several times to make sure of this or she would be suffering. I will be making a hospice decision soon, but they may be able to keep her going much longer. I had a dream that I put a pillow over her years ago when she was ill and now it is coming true. I want her no pain, but to go see Dad. Sorry for the sad story, but I know I can't be alone and I don't see a

Bo Bertino

September 25, 2007 8:39 p.m.

My 80 year old husband is in the early stages of old &quot;Alz&quot;, where he used to be so easy going, has now become argumentive like a 3 year old, and on top he has just been diagnosed with prostate cancer and they can't do surgery because of his age, so its only radiation, which he doesn't think he needs. I am not sure but I feel my plate is getting rather full, and with all that I will love him forever, his old self out weighs, his new grouchy self. You just have to learn to live each day and whatever it brings, been doing it now since 2001.

Marion

September 25, 2007 8:38 p.m.

We haven't llived in our ometown for over 50 years. My husband wants to back there to lilve. We have no family or friends there anymore. does anyone else have this problem?

Gerry Zehr

September 25, 2007 8:29 p.m.

continued!
both of my parents died from AD complications last year, and had all the suggested documents prepared in advance.
What helped me to advocated on their behalf even faster was an MD who &quot;just happened&quot; to declare my father &quot;incompetent&quot; (signed document) after he had previously taken over my mother's affairs. . . . With that in hand, it seemed like it was easier to get
help on many fronts.
And, I learned a lesson that I cherish - - whenever it was bleak and overwhelming, someone always seemed to appear to help/ guide us. I still refer to them as angels who appeared - - friends of mine, my parents, extended family, and even bureaucrats!! The kindnesses of so many people overwhelmed me at the same time I struggled with both parents' decline
and death. I hope you find that, too.

Jackie

September 25, 2007 8:22 p.m.

Let me suggest a very practical book. . .some of which may seem very simple and you may wonder why it even needs to be said. Unfortunately though, under the stress of daily care for a loved one with AD who is slowly declining, we often don't think of simple soluntions, cause we are just too tired, frustrated, saddened, and worried. The book is &quot;the 36 hour day&quot; and it includes simple reminders such as - - - if s/he can't make decisions &quot;what pajamas do you want to pack in your suitcase?&quot;, give them only two choices, i.e. the red pajamas or the blue pajamas;and limit instructions to one step at a time. . . My father never read the book while my mother's caretaker but it helped me to &quot;coach him&quot; a bit, and I could &quot;defer to an expert&quot; as opposed to common sense (that would have hit another &quot;button&quot; in our relationship!)
Also, both my parents died from AD last year, and had all the necessary documents ready. An MD declared them &quot

Jackie

September 25, 2007 8:06 p.m.

My moma [89 years old] has Dementia, stroke &amp; in a wheelchair. I read a article in AARP book about Alzheimer's medicine, it said it might help Dementia. I called her doctor to have her put on medicine for Alzheimer's and it sure has helped her so much. She is the sweetest Mom anyone can have.

Dee

September 25, 2007 7:51 p.m.

My father is 81, with dementia, and my sister and I had to move him into a nursing home last May when my mother passed away. I can sympathize with you Susan, about moving your mother close by - the first few months were horrible - Dad was very upset all the time, still grieving for my mother, and I was always in tears too. He wanted to go home very badly. Fortunately, somehow he never blamed us for putting him there. All my aunts/uncles supported our decision, knowing that there was no way he could live on his own. The facility is part of the same retirement complex where my parents had an apartment, so there were a lot of people that he knew close at hand, and we're lucky that one of my aunts lives in the same complex. 5 months later he is well adjusted, likes the staff (has no idea of their names of course), enjoys the food/activities. Your mother will adjust - but it won't be easy. Hang in there!!

pam

September 25, 2007 7:34 p.m.

At the end of her AD, my mother could not swallow. She went 10 days, and you can imagine what it was like with no food or drink. She had a Living Will, so any attempt to keep her alive by artificial means was out of the question. Although it was hideous for the family, she saved us the pain of making that choice. She spent the last 3 days in a local hospice. They were great, and kept her asleep most of the time. Too bad they didn't take her a week sooner. The one thing I wish is that my stepfather had gotten some kind of support. He refused to attend a local support group, and had quintuple bypass surgery after Momma died. I am sure it was related to the stress of being her caregiver.

Mary

September 25, 2007 7:21 p.m.

How do you deal with compulsory haabit in a mild-moderate AL patient? My husband closes the blinds all over the house in the afternoon in spite of bright sun shine outside. He repeats this over and over again when they are re-open.

I-ling

September 25, 2007 7:19 p.m.

my husband of 46 years,develope alz at the age of 62. He is now 67,I'am his caregiver,but also have to work to pay the bills. We got him on the edlery wavier to help with the medical because we had no health insuance. Does anybody know of any other help,so I can stay home with my husband,I don't like leaving him alone,and can't afford help

Sue

September 25, 2007 7:15 p.m.

My husband and I are caretakers to his mom who was diagnosed 3 years ago with early AD. She was a very independent woman, now 89 and it broke my heart every time we had to take away some independence. I have to admit that our area in northern WI has as much support for the AD patient, their family, and their friends as anyone could ever want. My husband has cut his work by 80% in order to care for his Mom which puts a lot of pressure on us financially and affordable home health care is difficult to find. Our only need for outside help is in the challenging area of personal hygiene. We are also blessed with her physician who lost his mother to AD and every case he treats is very personal to him. It will be very soon that we will be faced with a decision about extended care. I appreciate Angela's comments about POA and health directives being in order and our youngest son at age 25 brought up that we should also think of setting up the same for ourselves.

Anne

September 25, 2007 7:13 p.m.

What are the legal/moral implications of my father opting to withhold medical care and medications for my mother who clearly is suffering undiagnosed Alzheimers? Her vote is no meds; but how can an afflicted person decide their own care? What is an adult child's recourse? Any comments?

Jenny

September 25, 2007 6:51 p.m.

There are several questions out there from many of you about Alzheimer's and Dementia. Let me try and explain. First, senile Dementia is a defination from the past. Most people in the know about Dementia no longer use that term. Dementia is an overall defination of any thing that realtes to a problem with the brain. The last I knew there were over 100 different kinds of dementia. Alzheimers is the biggest of all the dementias. Look at it as a house with 100 rooms. The total house is DEMENTIA. The largest room in the house is ALZHEMERS. Hope that help clear it up some. The way Alzheimers was diagnosed many years ago was by the elination of all the other kinds of dementia and that was then called Alzheimers. Today, the best clinicians are about 95% accurate in their diagnosis. It is true that in the past the only real diagnosis was after death. That is not really true now with all of the advancements that have been made in the last few years. Out of room now

Duane

September 25, 2007 6:36 p.m.

Mom has had some sort of dementia for 8 years. She seemed to develop it when under the stress of day/night caring for my father. During the last year she became paranoid and I took her off aricept and namenda. She has been happier and the paranoi is gone. Her short term memory is terrible and of course she is losing long term gradually. At least she is happy most of the time. She is staying at home with care givers and me coming and going. At 97 I hope this will the way she can live for the rest of her life.

Sue

September 25, 2007 5:49 p.m.

We recently had to move my Mom from Florida to a skilled nursing floor in an assisted living facility in Dallas. She was diagonsed with AD in Feb. and then broke her hip in July. Since last September when she broke her wrist she has had 24/7 care in her apt. She has declined since her arrival here and is going thru her second bout with C-diff. She is demanding to go home. Her agitation and confusion is at an all time high. They have told me to limit my visits to a few times until she adjusts. This seems barbaric, not being able to see her more often. I want to do what is best for her. Since I am an only child I feel so responsible for her well being. Please advise.

susan

September 25, 2007 5:34 p.m.

My Mom who is 95 has AD or Dementia. Right now the name doesn't matter her short term memory is about nonexistent. she was always a night owl &amp; now that I know what it is I would say she was a bit &quot;OCD&quot;. Her nightime behavior has become increasingly worse. She get up 4 to 8 times a night to check that the doors are locked. I spoke to her Dr. about this but he feels its all part of the disease &amp; the sundown syndrome. I can agree with that somewhat, but I strongly feel that her OCD has been exacerbated because of the AD &amp; perhaps increasing or giving anxiety meds may help. Anyone have this particular problem-yet?

Madelyn

September 25, 2007 5:02 p.m.

I have read all the comments posted and never, once have I seen anything on children with Down Syndrome having Alzheimer's. I am a caregiver to my brother, who is 47. He was born with Down Syndrome and two years ago was diagnosed with Alzheimer's. He has lived with me for the past 10 years and I have loved him as my own. But, unfortunately, it has become more and more difficult for me to take care of him. I am aware that seniors have &quot;lucid&quot; moments and are able to communicate with their caregivers and be told what is wrong with them. My brother does not understand any of it. He does know something is wrong but doesn't understand the disease at all. The disease is progressing rapidly. I have had to put his name on a list for the nursing home. He needs 24 hour care now. It is breaking my heart to have to place him somewhere else. I get angry at the &quot;Powers that Be&quot; because everything he has had to learn over and over again, over the years, is now suddenly taken away

Carrie Caines

September 25, 2007 4:49 p.m.

My husband &amp; I have been the primary caregiver for my 86 yr-old Mom. Her memory began diminishing after a heart attack in 2001. About two years ago, she became very paranoid and distrustful and primarily exhibits these behaviors towards my Dad (they have been married for 65 years). She was verbally and physically abusive towards my Dad to the extent that we had to bring her into our own home so they could live separate. My Dad is now living with us, too, and this seems to cause her alot of anxiety. I have an autoimmune syndrome (in the same family as Lupus) so this has been extremely difficult for me physically as well as emotionally. But, at the present, I do not feel that she would do well in a nursing facility. I think it would exacerbate her insecurities and her health would deteriorate rapidly. She loves going for rides, to Mass, and out to breakfast for waffles. Doing these things for her and giving her small tasks that she complete successfully seem to help her a great d

Sherie

September 25, 2007 4:48 p.m.

Mike, as I stated previously, try and get a book, that describes all the different stges, someone with alzheimers, goes thru. I won't say the moon has a part in it, but the aggression, the language, and other actions, are all part of the phases they go thru. After I read the book for my grandfather, I was able to understand, and better handle the phase, where he followed my grandmother around. He didn't know he was doing this, but she thought he was mad at her, thus followed her around the kitchen table, in circles. But because I had read the book, I understood, it was a phase he was going thru. He meant no harm, by following her. But it scared her. Everyone, read a book, and learn the stages they go thru. You'll be glad, of the understanding, it gives you. It'll make it easier, caring for them, by you.

Randy

September 25, 2007 4:42 p.m.

Marc, In my experience, my Dad seemed to go through periods of quicker decline, then level off for awhile. If the agitation is late in the day it could be sundowning. Overmedication was another factor for my Dad.
To DPerkins, there are many kinds of dementia, not all are Alzheimer's, but the reality is just as devastating to the family. Would your situation have been different if your parents were diagnosed with something other than Alzheimer's? My condolences to you, especially since my Dad is near the end.

sophia

September 25, 2007 4:42 p.m.

Thanks so much to Mayo clinic and Angela for the opportunity to share and help one another. My experience is both professional and personal. My dad had Dementia with Lewy bodies. Some of you may be aware of that illness. Dad's journey inspired me to write the book Eldercare for Dummies. I can assure you that being pin the healthcare profession (as nurses, social workers, physicians, etc.) does not protect you from the emotional pain and physical stress of caring for a loved one with Alzheimer's or any of the other dementias.

Rachelle

September 25, 2007 4:38 p.m.

I wonder if anyone is going to be available to answer all the questions that have been asked?

Terry

September 25, 2007 4:37 p.m.

I have been caring for my mother who is 85 and was diagnosed several years ago with AD. My daughter helps me as she can - she has her own family to care for as well. Mother requires 24/7 care and we are having a difficult time trying to find affordable help. She does not qualify for Medicade nor nursing homes. She does not need skilled nursing. Of course she could go to a special care unit in an assisted living center but the cost is prohibitive. I finally found respite care, but also very expensive on my budget. Is there any help out there I'm overlooking? I really need a break. HELP!

Betty Mac

September 25, 2007 4:34 p.m.

I have a question. My father is in the moderate stage of Alzheimer's disease. My mother is his care partner. While the loss of memory seems to be the toughest part of this for him to accept and deal with, for my mom, the toughest part is experiencing the behavioral changes which her spouse of 51 years is now exhibiting (including agitation, agressive behavior, and cursing.) He never acted this way prior to the onset of his disease, however, his agitation and aggressive behavior seems to worsen when there is a full moon. Has anyone experienced a similar &quot;full moon affect&quot; with regards to a loved one with Alzheimer's disease? Is this simply a coincidence that I've taken note of, or might there be some precautions we can take to lessen his agressiveness and agitation, if this is indeed a definitively known factor that affects other people with AD?

Mike

September 25, 2007 4:28 p.m.

It is my understanding, after loosing my parents to what we thought was Alzheimers, that Alzheimers can NOT be diagnosed until death. How is it that Mayo does not mention that in any article?
Thank you

DPerkins

September 25, 2007 4:11 p.m.

Does AD take a sudden downturn in symptoms in the moderate to late stages? Could there be contributing factors such as a mini stroke or a TIA that would cause greater degree of forgetfulness, anxiety and confusion?

Marc

September 25, 2007 4:11 p.m.

Debbie, I understand your situation very well. People, will simply do what THEY THINK, is best for them. Not always what is best for someone else. If it's any help, you'll feel satisfaction afterwards, because you didn't give up. For you, and everyone else in your situation, I really recommend, that you read a book, that explains all the different levels, patients go thru, and it helps you understand, why they do the things they do. It's an understanding, of what Alzheimers causes. I don't remember the name, after all, it was over 20 years ago. But ask at the library for their help, in finding a book like that. I really believe, you'd be relieved, after reading it. Many things they do, we can't understand. But they don't really know, that they're doing it. Reading, and knowledge, will help you very much. Hang in there, you'll be grateful one day you did.

Randy

September 25, 2007 4:06 p.m.

Is there an effective medication for the moderate to severe stage of AD? A family member took my loved one off Radazyne without supervision and patient has been on nothing since-about 20 months now. Loved one's decline is drastic in the last few weeks and is now in full time nursing care and experiencing some complete loss of recognition and delusions along with severe anxiety. What medications,if any, would be helpful at this stage? Thanks

Audrey

September 25, 2007 3:54 p.m.

The best advice I can give is to be sure you have a Power of Attorney and a Health Care Directive signed. There will come a time when they are unable to take care of their own finances and unable to make their own medical decisions.

Angela

September 25, 2007 3:48 p.m.

Hello Emma:
I am not a doctor so I can not give medical advice but I understand from what I read and hear that there is no such thing a senile dementia. While various types of dementias have the same symptoms as Alzheimer's, you are correct in stating that without an autopsy a diagnosis cannot be definite. However, with today's advances, a good neurolgist can diagnose the condition of Alzheimer with with a great degree of accuracy. I do take my hat off to you for caring for these people though you state you have no one in your family who is afflicted with the disease. May God give you a long life to continue your ebdarvor.

Tony

September 25, 2007 3:39 p.m.

My mother turned 92 on Sept. 3rd. I have been commuting over four years now to take care of her in her own home. It takes me over an hour to get to her home. I do not have any family members to help me, nor do they ever call me to give me support. I sometimes have felt very angry about the lack of family support. It has been a drain on me emotionally and financially since it effects my ability to work full-time. I am very worried what will happen in the next six months as my mother gets more and more confused. She is in the middle stage. My biggest problem is her stubborn personality that she has had all her life. She doesn't like anyone in her home, so it makes it difficult to hire help. She won't let them in the house or she is nasty and tells them to leave. My mother told me that she wants to die in her home, so I have arranged to have hospice when that time comes, but in the meantime I am beside myself and I am getting very tired. Debbie

Debbie Shapiro

September 25, 2007 3:24 p.m.

My husband, 71, is diagnosed with Mild AD and is currently on Namenda and Remeron.
What are some activities that are recommended to help with cognition? At this time he is starting to lose names of common objects; no phone conversations and most names of people that are not family are gone. Thanks for any help!

Linda

September 25, 2007 3:17 p.m.

My grandfather, Wilton, who with his wife, Maude, raised me from birth. He was diagnosed in 1982, as having Alzheimer's, and passed away, Jan. 21, 1986, because of it. His dr. suggested a book to read, that detailed all the different stages, that people pass thru, and it was a great help, in understanding why, he did certain things. His wife, Maude, my then wife, Shirley, and myself, were the ONLY caregivers, that he had. And yet, we NEVER abandoned him, or thought he was causing too much trouble. With the exception of occasionally being hospitalized, he stayed at home, and that is where he left this world, in the hope of an after life, that God would give him. We ALL enter this world as babies..., and at least, in his case, leave it as a baby as well. For some time before passing away, he was TOTALLY bed ridden, he had lost ALL ability, to care for himself. Not only having to have a tube inserted in his stomach to feed him, but ALSO, to give him fluids. He FORGOT, he HAD TO SWALLOW.

Randy

September 25, 2007 3:04 p.m.

i hae had experience taking cae of my mother for 8 yrs. while she was decending into dementia. i would like anyone taking care of someone to know it is hard work but you should be careful to get help or talk with someone about the problems this presents. the person with the problem cannot help themselves with their personality, anger, etc. i know my mom felt like she was losing her brain power and my sister and i felt helpless to explain things to her. we had a good doctor and we did all we could for her. do not get angry when the patient does, just understand that they can't think properly and probably feel bad about many things happening to them. just be patient and get enough help and rest for yourself. you deserve it.

patricia a krupica

September 25, 2007 2:59 p.m.

I am so glad to find this blog. My boss has Alzheimer's. He owns the bank where I am his administrative assistant aka caregiver. He is in midstage and to the point he really should not be here but his wife keeps bringing him. I am sure he is very, very insistant about her bringing him to work. (we were finally able to get his pickup away from him) It is very frustrating to me to see him declilne. I have worked for him for 28 years. Additionally, my husband has been diagnosed with Parkinson's Disease so when I go home I am a caregiver too. No support groups for either condition close to me.

Bert

September 25, 2007 2:37 p.m.

My Dad is 81 and in the end stage. Our family is fortunate as we are a large, close family and everyone supports each other and our Mom, but even with that it is the toughest thing we've had to deal with. It's been a long haul since the first inkling that something was wrong; forgetting what things are called, not knowing how to use the toaster. My advice is to educate yourself as much as you can about what to expect and how to cope. Dad doesn't recognize anyone and has limited verbal communication, but our time together is cherished. The hardest part was truly accepting he has AD and he wasn't going to get better. Keep your sense of humor (even if it becomes kind of morbid at times) keep your patience, keep your memories, and just keep loving them. They still know that much even at the end.

sophia

September 25, 2007 2:23 p.m.

I just read a few of the messages posted here. What a relief!! I'm 56 and I didn't want to admit to myself that something like Alzheimers could affect me at what I thought was an early age. I'm very interested in finding out more and appreciate the efforts of Mayo Clinic.

Don Felipe

September 25, 2007 2:04 p.m.

I'm so gald that this blog is available. It is very lonely being the cargiver. Now I can comisserate with fellow caregivers. My husband is 79 has been diagnosed with Mild Cognitive Impairment and is on Aricept. It seemed to be very effective for the fist year, but now I see little improvement. However I don't know how much more deminished he might be if he were not on this medication. We also don't know if this will go into Alzheimer's, but from what I read it probably will. He still exhablits his same sweet prsonality but is getting increasingly quieter in social situations. Sometimes I am astounded at his short term memory loss. For instance a phone call from one of the children cannot be retold minutes after hanging up. I look forward to hearing more from all of you as we share our difficulties.

Patty

September 25, 2007 2:03 p.m.

My 65 year old husband is in the middle stages of Alzheimers. He likes his vodka but I notice an incredible change in him after just a couple of drinks. I know it is the mixture of the Aricept and Prozac with the booze, but can't get him to stop. Is there anyone out there who may be having the same problem? All the books say to remove the alcohol, but he just can't give it up. Sunday, he walked over to the corner store to get some because I wouldn't take him, and of course he got lost trying to get home. He was 4 blocks away from our house when I found him. I felt bad that I didn't take him, yet I will not condone the drinking. I would be grateful for any suggestions.

Nancy

September 24, 2007 4:20 a.m.

My husband had Alzheimer's as early as probably age53 but we were too into denial to pick up on it. His doctor had his insurance company approve some test after which he ASSURED us that he didnt have Alzheimers but I knew some symptoms he was exhibiting were not right and the third or fourth MD correctly diagnosed Alz. By a few years I could no longer care for him and he went into a nursing home. It was very devastating to our whole family{six kids} .His father also had it. When he died we had no idea that there was a familial component and my kids are frantic that they are in line to get this dreaded disease. I would like to be an activist to raise money for more research but I dont know how to go about it. I would be grateful for any help or suggestions.
Barbara

barbara

September 23, 2007 4:23 p.m.

I've wondered, too, about how to differentiate between Alzheimer's and other dementias. My dad says the doctor diagnosed dementia in my mother but didn't specifically say it's Alzheimer's. How do we know for sure, or can't we? Emma, I think you belong here as much as any of us. Perhaps you'll have some insights as a non-family caregiver that will help others here. I look forward to reading more.

Louise

September 22, 2007 8:08 p.m.

Hello,
I am not a caregiver to a family member with Alzheimer's disease but I do care for people affected by this disease. I wonder if anyone can tell me how Alzheimer's is differentiated from senile dementia and is there now a definitive diagnosis for AD? I know at one time it was felt that a person could only be diagnosed by autopsy after death. I know how challenging,frustrating and physically&amp;emotionally draining your tasks are. I can empathize for I have been caregiver for my Dad who had been left profoundly confused and debilitated after having a stroke. The people I care for with AD have one common factor and that is that they are, in fact,people. They bring joy to my life as well as sorrow.
I don't know if it is appropriate for me to be on this site since I don't have a spouse or parent or family member with AD but I just wanted to comment. Wishing you all well,
Em

Emma

September 22, 2007 3:32 a.m.

Like Rose, I haven't been able to find a support group, but I also haven't been able to find a daycare or respite care facility, and the strain is beginning to get to me. I life in the Hurricane Katrina counites that were nearly wiped out, and it seems that it took all Alzheimer's support with it, too. The only support I can get is through the internet and I need badly to learn of activities that might help my husband hold on to the memory he has left. I can't get him to do the social things we used to do because he doesn't want people to realize anything is wrong with him, but we do go eat with two old men for dinner and he tries to listen, but his hearing is so bad he doesn't understand much of what is being said. He has some very expensive hearing aids but he can't wear them because they not only don't fit right, but they also make his hear hurt because he isn't used to hearing normal sound. I wear the same type and brand of aid and I must admit, he isn't entirely wrong. Barb

Barb

September 21, 2007 10:28 p.m.

I'm sorry to hear about your wife. my husband has that terrible disease. I`m trying to find a support group in my area. so far without any luck. thank you
rose

Rose

September 21, 2007 5:46 p.m.

Hi Angela
I hope this site is successfull! There are so many people out there that need help and do not go to support groups, for what ever reason(s). I have been a care giver for my wife going on 15 years. The last 5 I have been a volunteer for the Alzheimers Assoc. and am VERY involved in many things.
Just a note, the last figures I saw said there were 44 million people out there that were affected in some way with a person with AD. That is scary! Also, I believe there are many more than 5 million in the U. S. with AD. African American and Hispanic people are known to feel this disease is a normal part of aging and they are probably not in the statistics.
Thanks for letting me ramble on

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