Together, we can save lives.

Food allergy is a serious and growing public health issue. Approximately 15 million Americans have food allergies, including 1 in 13 children. Every three minutes, someone is taken to the emergency room for a food allergy reaction in the United States, and the underlying causes of food allergy and its rapid rise in recent years is still unknown.

FARE’s Patient Registry seeks to answer these questions – and achieve so much more as we work to accelerate research in the area of food allergy. The information you provide will help foster new directions in research to better understand how food allergies affect individual patients and what therapies can be developed to help them. Your participation may help us discover new ways to improve patients’ lives and connect individuals and families to new and innovative clinical trials nationwide.

Why Join?

Your contribution will be advancing life-changing initiatives in education, advocacy, and research. FARE’s mission is to improve the quality of life and the health of individuals with food allergies, and to provide them hope through the promise of new treatments.

FARE is working on multiple fronts to drive scientific discoveries and progress in food allergy research. In 2015, FARE established the FARE Clinical Network, a collaborative of 27 research and clinical care centers across the United States. The FARE Clinical Network enabled FARE to expand the food allergy community’s access to clinical trials and high-quality food allergy care, including better diagnostic tools. Being a part of the FARE Clinical Network enhances each center’s’ infrastructure and capability to perform crucial late-stage clinical trials.

Who Can Join?

Individuals with diagnosed food allergies and family members of children with diagnosed food allergies are invited to join the registry. Anyone around the globe can register! The top eight food allergens are milk, eggs, peanuts, tree nuts, soy, wheat, fish and shellfish. However, any food is capable of causing an allergic reaction. Eligibility requires participant to provide online informed consent.

The FARE Patient Registry is made possible through the generous support of our donors including anonymous private philanthropy, Aimmune Therapeutics, DBV Technologies and Sanofi US Services; and through the efforts of the FARE Medical Advisory Board.

Every disease community should have a common, accessible patient registry.

We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community.

But registries are hard to maintain.

Registries are expensive. They need constant upkeep - usually by people with a lot of expertise in disease and data management. Often there are multiple competing registries for one disease, which leads to siloed, dead-end data that nobody can use.

Patient Crossroads is here to fix all of that.

Our CONNECT platform enables anyone - from individual patients to global research organizations - to collect and share disease data in a way that’s controlled, transparent and centered on patients’ best interests.