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Thursday, 9 October 2014

When other mental health sufferers say they are ashamed (many of them are, for one reason or another) I'm usually the first to respond with - "You have nothing to be ashamed of, you can't help being ill" - and I mean it!

However, I'm afraid it's a case of 'Take my advice, I'm not using it', because there really is no other word than 'ashamed' that describes how I feel, overwhelmingly so, and have felt for a very long time.

My 'shame' might not be rational, but it is 'my' truth, and that's what this space is for.

My four older children are a different story - these days (though they try hard to hide it) they are uncomfortable around me, resentful, ashamed.

They're no longer babies, I can't hide behind, sand castles, sock puppets, and 'sing a song of sixpence' anymore.

They don't understand mental illness, they can't see 'Stuck-In-Scared - but they can see whats going on externally, and it frightens them.

I love my kids and they love me. I have never set out to hurt them, but (without meaning to) hurt them (emotionally) I have!

I am ashamed.

I AM WIFE - I am the wife who almost drove my husband away, because I was blind to how my illness affected him.

He says that blinded by my mental illness (which in fairness has been greatly exacerbated this past few years) he lost sight of ‘me’ - he’s sorry - he loves me - he’ll never hurt me again.

I blame myself - I'm looking into his eyes, and seeing, Where I once saw special, everything I despise about myself reflected back at me.

I am ashamed.

I AM ADDICT (In recovery) - I am the woman who, consumed by symptoms of mental illness, used gambling as a form of escapism. despite knowing she was hurting herself, and those she loved.

I am the grown woman who once sat on a stool in a bingo hall, and wet herself because she'd pumped too much money into a fruit machine to chance another punter stealing her win while she went to the loo!

I am the mother who was often late picking her children up from school because she couldn't walk away - who struggled to feed her children, and went hungry herself, because she'd gambled best part of the housekeeping.

I am the mother, who (up until ten years ago) thought more often about her next bet, than she did her children, and her older children remember that!

I am ashamed

I AM OCD - "I see the brush slam down onto the back of my beloved child's head. I hear her desperate screams as the brush comes crashing down! I see myself standing over her, a stranger masking my face, the mask vaguely familiar and yet at the same time completely unrecognizable! I see my child confused, hysterical and consumed with fear beneath me. I repel with every fiber of my being against the *illusory images*; my heart breaks!" read more

I am ashamed

(Please be aware, the above paragraph has been recycled from an old post, and is about intrusive thoughts, a symptom of OCD - NOT child abuse, you can read the paragraph in context by clicking on the (read more) link above. Thank you.

I AM SELF HARM - Sometimes I feel desperate, sometimes I feel angry, unimaginably angry, angry at me, sometimes I crave feelings of relief, calm, control - sometimes I just need to feel.

I starve, burn, cut, bleed, I am visibly scarred.

I am ashamed

I AM AGORAPHOBIA - I'm unable to go anywhere alone, unable to go out at all some days.

Despite being accompanied in public, I often experience catastrophic thoughts, often experience paranoia, and sometimes experience panic attacks - sometimes it's clear to onlookers that I have issues, my awareness of this exacerbates anxiety, and shame.

I AM EATING DISORDER - probably the most terrifying symptom of mental illness Iv'e experienced yet, and the one I find the most difficult to write about.

This relatively new addition to my mental health issues frightens the life out of me, and I simply cannot find any 'justifiable' reason for starving myself half to death when I have five children who need me to be strong, and ALIVE!

I am ashamed.

(2016 edit...I have made some progress since this post was published, two years ago. I'm still unable to eat in front of people, and my eating is still somewhat disordered, but I am eating now (as opposed to surviving on cuppa-soup and coffee) and my weight is within a healthier range...there is progress. I'm not there yet, but I'm getting there... I think.)

I AM BENEFIT CLAIMANT - My youngest child and I are both disabled, my husband is our carer, we didn't ask to be a burden on society (Tory words, not mine) but we are - we take the 'social security' (incidentally, from the same system, that my husband paid into for 20 years, before taking on the role of full time carer) or we are unable to survive.

Fear of the Government, the media, and the benefit system, fear of those in society who have no understanding of invisible illness/disability, and are taken in by the 'scrounger' rhetoric, has led to a dramatic increase in my symptoms, and has caused an Eating disorder, that I did not have prior to the UK Governments combined attack against welfare recipients.

It seems these days its almost impossible to read a newspaper without the words, liar - cheat 'scrounger', jumping out from the page.

I feel judged - by Government - media - society....I'm afraid that you, dear reader, may be judging me right now!

I am ashamed.

I AM DISABLED - Damaged 'stock', a drain on loved ones, a drain on the state.

I have a child-like way about me (not always a good thing), a wicked sense of humour, and a heart for the hurting.

I like Christmas, a lottle (that's like a little but a lot). I'm obsessed with Betty Boop; there may be more Boops in my house than there are in the Boop-Shop.

I love: Clouds, the sound and smell of the rain, the sun on my face, sand between my toes. Sausage meat between my fingers (that's not as mad as it sounds). Paddling. Puddle jumping. Mud between my toes. Being with my kids. Cappuccino!

I hate: Cruelty. The current UK Government. War. Greed. Fish (unless it's cod...cod's okay). Oh, and the wind; I HATE the wind, it's so... so irritatingly-windy!

I have a fabulous imagination, and the ability to get right down on a child's level, and I mean right down; like 50 going on five down, so I make a great playmate, Where my relationship with my children is concerned, these qualities are my saving grace.

PRAYER

Lord, I pray that the eyes of those who 'see it how it isn't', be opened, and the voices of those 'who tell it how it is', be heard. Amen.

Monday, 6 October 2014

Many mental illness sufferers (including me) feel the need to mask their symptoms face to face; especially if the face they're facing has no experience or understanding of mental illness, and is anticipated by the sufferer as likely to judge.

Often a persons outward appearance bears no semblance to their inner truth.

They might appear bright; animated even. Doing a fabulous job of mimicking your sunshine, and yet be stood before you in a haze of darkness.

They may be holding a conversation with you (wearing one of those award winning smiles) whilst at the same time battling to control intrusive thoughts, compulsions, voices, suicidal thoughts.

From my own experience... I often mask the turmoil beneath the surface, because I'm ashamed, because I fear judgement, and because I don't want to burden others; least of all those I love.

Frequently, when I'm asked questions like ‘are you okay?’ or ‘how are you?’ my mind reels off a load of relevant answers that completely contradict the "I'm fine" that rolls off my tongue.

In my case (and I believe the same is true for others, but I can only speak for myself here) it's entirely possible that I might be mimicking sunshine only hours after a major meltdown.

Mental illness is (usually) invisible, but very real. It's often debilitating, often disabling, sometimes life threatening, and always incredibly painful. Whether you can see it or not!

It's impossible to tell how someone truly feels on the inside based only on their outward appearance.

***

POSITIVE THOUGHT

These days, Thanks to Twitter (and other networks full of like minded people) many sufferers (including me) are able to reach out, open up (whilst remaining protected) and access the empathy/support they need.

PRAYER

LORD, Please bless all those who say “I’m fine.” when in truth they are far from it. I pray their lives be filled with people who care enough to see (and understand), the turmoil behind the mask.

My scribbles include my own experience of mental illness, gambling addiction, and Fibromyalgia. Good and bad days (past and present). Life in general, lots of poetry, and occasionally a little of my nonsense. :o) It helps me to share; I hope that somewhere in my ramblings you find something that helps you... Kimmie x