Lisa Engel's Page

Children with HSP
Would anyone with younger children be interested in contacting me regarding their journey with HSP. There is such limited information out there and I am hungry for answers. My email is lila_mk@ho...

published 11 months ago

research
I am trying very hard to find a research hospital for my daughter. She continues to receive botox every 4 months which is extrememly expensive, our insurance barely touches it and we usually meet ...

published about 1 year ago

insurance coverage financial hardships
My question is does anyone out there have any good suggestions for insurance we could purchase that would assist with the payment of our daughters medical bills. We have primary insurance covered ...

published about 1 year ago

5 Year Old Daughter Diagnosed with HSP
My 5 year old daughter was diagnosed within the last year with HSP. She has spasticity in her legs with weakness in her abdominal trunk and lower calf muscles. She started out not walking, then ...