daydreamer19's Recent CancerCompass Activity

Jeff,
That is such an awesome and inspiring story! I'm truly glad to hear how well folfirinox worked for your wife and will hopefully work that well for my dad! Thank you so much for sharing! I knew when he was diagnosed that the statistics were terrible, but I also knew there were people with stories of hope and survival! I'm so glad I've joined and I'm so grateful to keep hearing more and more positive outcom...

Oh good. I hope the folfirinox has worked well and slowed if not shrunk the cancer :)
I'm not sure as to when to start screening. With most cancers they recommend 10 years before your family members diagnosis. So if your dad was diagnosed at 58 they may recommend 48 but with this cancer it may be sooner. Please let me know how your dads results are :)

I don't know where you live but the GI doctors I work with say that if you have two or more first degree relatives with PC then they recommend and I think insurance will cover yearly endoscopic ultrasounds. Please keep me posted as to how your dad is doing :)

It definitely is making things busy that's for sure.
My Dad is only 52 & I think he's doing well managing the psychosocial stuff but I know he's scared and very angry. My Grandpa, his father, died at 48 from what I'm guessing may be a misdiagnosis considering it was 1971. Dad remembers that his Dad complained of back pain, they opened for surgery, called it colon cancer and closed cause it was so widespread. He p...

I'm already struggling with the bitter sweetness but I'm really happy he can be here for it. What's worse is I'm an only child and I desperately want him to meet my babies so I've put a rush on getting pregnant as soon as the wedding is over.
No he's not a smoker. He doesn't fit any of the risk factors. Otherwise entirely healthy, worked out everyday and had a healthy weight. Now he's down to 141# from 158# but g...

It is a very cruel disease that's for sure. I'm glad you were able to have your dad at your wedding but I'm sure you want many more years and milestones with him too! Keep your head up. Medicine is advancing each day!

Thank you all so much for the support and for sharing! Just an update dad is on his second cycle if folfirinox, he does this every other week, and he's wiped out but only vomited once on the first cycle and has not had any vomiting with this cycle! No other side effects at this time ! Plus his blood counts stayed good in between cycles! 3 weeks till my big day and I feel that my Dad is doing great!

I'm happy to hear of the better results with the change in chemo. My dad has 4-5 masses in the liver that the surgeon could visualize and he had his first cycle of folfirinox thus week. I'm hopeful this will provide us with just as good results! Keep us posted!

Not to be a downer but my dad was thought to have stage 1 pancreatic cancer, PET scan was negative for any mets. 3 weeks later he went in for the whipple procedure and was found to have multiple 1 cm masses on his liver. I'm a nurse and rely on diagnostic testing but thus far the CTs have been more helpful than that PET scan.

About daydreamer19

I have been thrown into this disease from both a nursing standpoint and now a personal standpoint. My father, age 52, and otherwise completely healthy, was diagnosed with pancreatic cancer in nov/dec of 2012. Originally though to be caught early, attempted the whipple only to find multiple liver masses. Dad started Folfirinox Feb 4, 2013. I'm just looking for support, information and hope.