Skyeler
was diagnosed with Noonan syndrome in September 2012 – a congenital
disorder often referred to as a ‘hidden condition’ as it displays no
obvious signs, but consists of problems that may be varied and complex.
Skyeler’s parents note that not all of his issues are covered by the
Noonan syndrome diagnosis. In addition, Skyeler suffers from chronic
constipation, oral aversion, developmental delay, subglottic stenosis,
seizures, sleep apnea and vocal cord paralysis.

Skyeler’s
parents state that the hardest part of the journey has been seeing
their little boy so sick and completely helpless. They are inspired by
how he has persevered and how he continues to remain strong and keep
smiling. “He has overcome so much, he gives us the strength to overcome
our fears.”

As a
message to other families who have children with similar diagnoses,
Skyeler’s parents say, “Don’t go a single day without embracing them in a
hug, giving them a kiss and telling them that you love them. Make them
know they are the absolute most important thing in life.”