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Wednesday, March 13, 2013

We apologize for the lack of updates lately. Lisa has been holding
fairly steady but her blood tests have been coming in lower and lower.

Yesterday was the first transfusion she has needed in months. This might
suggest that her bone marrow is having a harder and harder time
recovering from the successive rounds of chemo. She's been getting
chemo every third week now since October I think. I don't even want to
look back at the log to find out.

Life has been fairly stable lately so
I don't want to even think about it. Unfortunately, I suspect we're approaching decision time again. Simply continuing chemo indefinitely isn't an option. Options are getting more limited because the disease
is also in her brain. I think we may be changing the chemo either next round or the round after that, and that could bring on any number of nasty side effects.

It seems the nearly all of the neuroblastoma
trials do not address disease in the brain. Chemo agents simply have a
tough time [or simply cannot] penetrating past the brain dura layer. So that effectively renders her ineligible for the experimental trials and studies that we would like to get her into.

Click links below to:

Hospital Info

O Holy St. Anthony, gentlest of Saints, your love for God and Charity for His creatures made you worthy, when on earth, to possess miraculous powers. Miracles waited on your word, which you were ever ready to speak for those in trouble or anxiety. Encouraged by this thought, I implore of you to obtain for Lisa health, strength and to be cancer free. The answer to my prayer may require a miracle. Even so, you are the saint of Miracles. O gentle and loving St. Anthony, whose heart was ever full of human sympathy, whisper my petition into the ears of the Sweet Infant Jesus, who loved to be folded in your arms, and the gratitude of my heart will ever be yours. ___________________________

St. Gerard, who, like the Savior, loved children so tenderly and by your prayers freed many from disease and even death, listen to us who are pleading for our sick child. We thank God for the great gift of our daughter, Lisa and ask him to restore our child to health if such be his holy will. This favor, we beg of you through your love for all children and mothers. Amen.___________________________

Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven. For where two or three come together in my name, there am I with them. Matthew 18:19-20