Search This Blog

Subscribe to this blog

Follow by Email

Pinterest, Fibromyalgia, and a Question

So... I have been looking at Fibromyalgia related pins on Pinterest today. Pinterest is something I use once in a blue moon and I had no idea there was stuff about Fibromyalgia on there.

I often find my self wondering if I was misdiagnosed and I have a different autoimmune disorder. But I don't think like that as much as I used to. When I was first diagnosed with Chronic Fatigue Syndrome and then Fibromyalgia, I think I was in a stage of denial because I kept searching for other possible answers.

In the beginning, I think I also felt very alone and sometimes I still feel like that, but reading other people's blogs about Fibromyalgia and their experiences has helped so much. While reading through others' blogs and posts, I'm constantly saying, "Yes! I feel that way too!" It makes me feel not alone and that I can relate to what other people are going through. And to read these things that other people are feeling and struggling with that I can relate to, has helped me accept my diagnosis. Plus, some people can explain what I'm feeling better than I can myself and then I can use that to explain certain things to others.

It is difficult to explain everything you're feeling- everything that is wrong- let alone remember it all. And when you list everything or say that you can't remember it all, people think you're crazy. My whole life I have heard, "it's all in your head" and "people are way worse off than you." They just don't get it. I once read a quote on some website, "you don't get it unless you get it." And that is the truth. A lot of people don't and wouldn't understand it unless they have it and go through what we go through on a daily basis. And what people also don't realize is how ignorant it is to tell someone that there are people worse off than you. First of all, we're not idiots. Duh there are people in the world who are going through worse but that doesn't mean what we're going through isn't bad or what we go through doesn't matter. Being chronically ill and in chronic pain affects my whole life. I don't want you to feel sorry for me. I want you to believe me and be understanding.

Quick Question: Does anyone out there with Fibro feel like they are less productive later in the day and in the evening?

Anyways, enough of my ranting and babbling. Lets get back to what I was first talking about, Pinterest. Besides the pins that describe how I feel physically and emotionally, I like the funny joking ones. Everyone needs a little humor in their life, especially when you feel down and tired all the time. So the humorous ones give me a pick me up and a smile for the day. Here are a few of my favorite pins from today:

Follow me on Pinterest http://www.pinterest.com/hhammel91/

Get link

Facebook

Twitter

Pinterest

Google+

Email

Other Apps

Comments

Hello Heather! Thanks for visiting my blog:-) i am sorry you have to endure the chronic symptoms of fibro. My mom has it too and i know it if not fun. Hang in there girl. You have a huge life purpose. I love dogs too, i have adopted 4! I have a daughter with a very rare and chronic desease and she goes through a lot of pain too and it is not easy to have to live in such condition at a very young age. I will email you the skirt info. Blessings! Xoxo, Jeannette

Thank you so much for your support! I can't even imagine what your daughter must be going through and being so young. I did not get diagnosed until I was 21. Your daughters are very beautiful and your dogs are so cute! and thank you!

Post a Comment

Popular posts from this blog

Baby is the Size of: a cauliflower! Baby #2 should weigh 2.5 lbs and measure 16" long. My gut feeling has been that her birth weight will either be 7 lbs 14 oz or 8 lbs 2 oz. At my ultrasound last week, Rhylan was weighing 2 lbs 11 oz which puts her in the 67th percentile (so she is on the big side). I have another ultrasound in 5 weeks and we should know her estimated birth weight at that appointment!!!

Weight Gain: 23 lbs. I'm trying to let this go but it is so dang hard. At this point in my pregnancy with Rory, I had gained 22 lbs but I also started off 11 lbs heavier this time than my pre-pregnancy weight with Rory (I try to say most of the 11 lbs is from my boobs permanently going from a B cup to a D cup though).

What??? We're actually doing a monthly update on time? It must be a miracle! On another note, I can't believe we have a 9 month old!!!

9 Months Old
Rory's 9 month appointment isn't until next week, so we won't know how big you have gotten until then.

You like to swing your toys in Audrey's face/ at her and you think it is so funny (you don't do it in a mean way, trust me, mommy wouldn't stand for that).
Hurricane Harvey happened in Texas and we donated to an animal rescue and the Humane Society of the United States. Hurricane Irma and Jose occurred not long after in Florida.
You tried bbq chicken, pulled chicken from Mission BBQ, watermelon and the inside of a grape.
You're becoming so independent and you try to undress yourself all by yourself.
(Nonna holding you at Great Grandmom's Farm and you just being precious)
First trip to Great Grandmom's (GG's) Farm in Virginia, which was also the longest car ride you've been in. You had …

Ah, it's Monday. I have been so bad at blogging lately and I'm sorry for that. Life has been so extremely busy lately and I have so much to update y'all on and share with you and so little time to do so. Bare with me here.

I thought I'd do a little post on house hunting since I have now been down this road of house hunting twice. I'll admit, there are tons of ups and downs and places in between. It can be very emotional and stressful at times but you have to keep your head up, stay positive, and know that it will all work out in the end. So to help you out, I'm going to list a few tips for y'all.

1. Find the Right Realtor for You
Finding the right realtor is key in starting your house hunting journey. You want someone you feel like is actually listening to you and not pressuring you into buying a specific house or pushing you to look at completely different houses that don't meet your requirements. And don't be afraid to speak your mind. My re…