Monday, November 17, 2008

The week is upon us!

This is the week we will be taking Blair to St. Louis to meet with a new surgeon. I'm so glad it's finally here. I have so many questions and a few concerns that I've noticed.

I cannot believe next week is Thanksgiving! UGH... That means Christmas shopping. I should of started a long time ago, but I'm a procrastinator! :) I always put it off until the last minute. But, I will get it done in one day! At least I did last year!

We have worked out a schedule this year for the Holiday's. Having to travel 3 hours can make it difficult. You want to be there for everyone, but sometimes it just doesn't work out. For Thanksgiving we will be staying here with my family. My cousin will be in town. I haven't seen him in about 10 years since he lives in MN. My aunt will be having Thanksgiving dinner at her house. Then, the day after Thanksgiving we will head down to Cabot to spend time with Britt's family.

Christmas we are doing a brunch at our house and having my family over. We will leave after that and spend Christmas afternoon/evening with Britt's family and the rest of that weekend.

It's the best thing I could work out to fit everyone in so that's the plan. And if it works out this year then we will probably continue to do this every year.

I think we are headed to visit both my parents and my in-laws for Thanksgiving...we haven't done that in 5 years. People have come to US the last 5 years. We have gotten spoiled. This year it isn't working out for them to come here, so we are hitting both places. Should be crazy and fun.

Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!