As a spoonie, the normal duties of work or school can become incredibly overwhelming. Depending on the severity of your condition, as well as the treatments you’re looking at, you may need to receive accommodations, reduce your hours/course load, work from home, or quit entirely. When you’re spending all of your spoons trying to survive, it can be hard to follow the script of “go to school, get a job, and work 40 hours a week until retirement”—and that’s absolutely okay.

Most of the world considers school and work to be the bare minimum of a worthwhile life, which is somewhat flawed; it doesn’t make space for folks with special needs or disabilities. Nevertheless, you’ll likely meet people who fault you for deciding to prioritize your health, and you’ll probably spend a good time being angry at or disappointed in yourself for not being able to meet that standard. In those times, just remember that this is only a cultural script—you can have a full, productive, and fulfilling life even if you step outside the standard pattern. Caring for your health and well-being is of the most importance.

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Disclaimer

None of the opinions or experiences expressed on this site is professional medical advice tailored to your own situation. Please consult a medical professional before making any changes to your health management plan.