Friday, February 21, 2014

Back at Home...

The day of discharge for Delaney's last chemotherapy treatment was very exciting and emotional for us all, and as you could tell Delaney was very happy. However, the BMT doctors explained it will take at least 3 months ...or longer for Delaney to fully recover from her chemotherapy treatments. Delaney, Mommy, and Daddy are still in the thick of it all. Delaney's body and counts are reaching rock bottom once again. Before Delaney was discharged on Wednesday she needed blood overnight, her hemoglobin counts were dropping. Delaney will have her follow up MRI scans the week of March 10th and lumbar puncture the following week. It was a hectic day yesterday keeping up with the medication schedule and getting adjusted to being back at home. Delaney did well over night. Today Delaney's home health nurse came by to get a baseline assessment on her, so we can continue to watch her progress through this chemotherapy cycle. In the early afternoon Delaney vomited, and as suddenly as she vomited, Mommy was by her side and quickly noticed that her feeding tube essentially shot right out her nose, it was too much of a risk to push back in so Daddy pulled the feeding tube out. This can turn into a big problem considering Delaney takes almost nothing by mouth, most importantly medication and formula. At this time Delaney was due for 3 anti nausea medications within 2 hours and one immediately. Our only choice was to try and coax Delaney into taking the medication by mouth from a syringe until we could place another tube. Delaney has essentially not taken any medication by mouth for over 5 months, it would be long shot. To our surprise and disbelief Mommy and Grandma were able to get Delaney to take the medication by mouth, Delaney did not hesitate, this saves herself from getting sick quickly. The home health nurse came back again and helped place a new feeding tube, to much of Delaney's displeasure, and then it was off to Livermore Kaiser for another x-ray. It was placed good and 1 1/2 hours later could use it. Delaney has another blood draw tomorrow morning at 545 am and has an appointment for platelets and or blood at 11 am. Delaney is very happy to be home with brother and in great spirits. It will be another busy day tomorrow. Thank you for all the prayers, love and support. As always... GO TEAM DELANEY!!!!

We are truly grateful, and humbled by the support our 2 1/2 year old daughter has received, again thank you.