We now have 254 people in the survey, the statistics have been updated on my web site through the first 246 people in the survey. Keep them coming. Thank You. No good news to report on the publication front - but will continue to try.

We now have 270 participants in the survey. I have updated the general statistics file and can be obtained from my website. I have gotten a total of 16 rejection notices on trying to get this information published. I will continue to explore options.

1) I am confused why with a question like this, the option "0" means both "Have not even tried it" and can also mean "Made it worse" . Those seem to be extremely different responses. If someone has not tried something at all, should they be grouped in with people who did try it and had more severe symptoms?

"Please rate how much any drugs, supplements, or diet changes have affected your symptoms. Enter a 0 if you have not tried anything or it made your symptoms worse. "

2) I am only 1 month into this experience so I have not really had an opportunity to try 90% of these things listed. Someone like me would really throw the curve out of whack and make the overall data skewed. Should you maybe make a criteria of some sort so that those who participate are at least equal in some manner, such as duration of symptoms?

3) Questions like this: "Altitude (less oxygen) * Anyone notice their BFS symptoms get worse at altitude? Yes = 1, No = 0" ..... the majority of people here haven't taken a recent trip to Vail Colorado while in the midst of their BFS symtpoms. So you are going to have a ton of people saying "0" ... which is equal to "No" ..... even though they simply haven't had a chance to try it out yet. That is going to mess up the resulting data as well. How about an option for "Not applicable" in all of these?

BFSBurger, you ask very good questions. I wish I had the information and feedback that I have now before I started the survey. I will try to address a few things about why I asked the questions the way I did - not saying it is right.

As for the first point, I wanted to find if there is correlation between potential remedies and other variables such as potential triggers, body areas affected, and symptoms. I was primarly interested in correlation that helped relieve symptoms, not make them worse. I am not using the "0" responses in any matter in my data analysis.

As for the second point, I have asked people to tell me if there has been any change in their symptoms or if they have tried other remedies. People can give me their code and I will update their response in the excel file I keep. So far, very few people have given me updates to their original response (which is obviously not good because the survey should be fluid and kept up to date - I find it hard to believe someone who answered the survey last year has not tried a new remedy).

The third point about altitude is definately true. But what I am trying to do is to find out if someone has been to altitude and if there is correlation with this and some symptoms, triggers, and remedies. My theory is that potential triggers, such as altitude, cause a new set of symptoms and body areas affected that people who have not experienced that have not been at altitude.

This probably does not do much to answer your question and there is not much I can do about the survey. It has taken me over 1.5 years to collect this data so changing the survey would be difficult at this time.

BFSBurger, you ask very good questions. I wish I had the information and feedback that I have now before I started the survey. I will try to address a few things about why I asked the questions the way I did - not saying it is right.

As for the first point, I wanted to find if there is correlation between potential remedies and other variables such as potential triggers, body areas affected, and symptoms. I was primarly interested in correlation that helped relieve symptoms, not make them worse. I am not using the "0" responses in any matter in my data analysis.

As for the second point, I have asked people to tell me if there has been any change in their symptoms or if they have tried other remedies. People can give me their code and I will update their response in the excel file I keep. So far, very few people have given me updates to their original response (which is obviously not good because the survey should be fluid and kept up to date - I find it hard to believe someone who answered the survey last year has not tried a new remedy).

The third point about altitude is definately true. But what I am trying to do is to find out if someone has been to altitude and if there is correlation with this and some symptoms, triggers, and remedies. My theory is that potential triggers, such as altitude, cause a new set of symptoms and body areas affected that people who have not experienced that have not been at altitude.

This probably does not do much to answer your question and there is not much I can do about the survey. It has taken me over 1.5 years to collect this data so changing the survey would be difficult at this time.

We now have 297 people in the survey and the general statistics have been updated and loaded to my website.

With the new comment section added to the survey I can address a few of them. First thank you to the person who gave me some sleep adivce whose leg twitches similar to mine as shown in the youtube video.

Magnesium is a suppliment.

Sleep may help us, but it is hard to say if our symptoms actually get better when we sleep - so I do not think to add it as a remedy.

Okay we have 305 participants but I have not yet updated the statistics. It has been nearly 3 weeks since the last person entered the survey - so the results are slowing down. Hopefully this is just because of the holidays, it would be great to meet our goal of at least 384 participants no including data outliers.

Sorry for the long time out, but been real busy. I hope everyone enjoyed a happy and safe holiday season.

We have 309 participants in the survey. I have updated the general statistics and added them to my website. I have also updated the article "BFS Medical Paper" and added a discussion on Mycoplasma. I also added an article on Mycoplasma and BFS from a personal experience.

Thank you all for the comments. To comment on a few - Paraesthsia symptoms I would break down as a combination of symptoms I post such as pins and needles, numbness, etc. Gatorade I would classify as a suppliment. Yes, alcohol use is an oversight on my part. As for the RN, I think most of the Neuro's think we are nuts.

There are now 321 participants in the survey. Thank you for your involvement. I have not updated any of the statistics since we hit 309 participants. Keep the inputs coming, our sample size is becoming very significant.