A Quirky Journey of Life

Lord knows that I am in no way a certified expert or giving any medical advice on dealing with fibro! However, I have learned some things over the past year that I would like to share in the hopes that it helps some one deal with their chronic illness.

So here goes

1) Make your bedroom your haven!

Wrap yourself up in comfort, get that heating pad you always wanted (check, your FSA or HSA may cover it) and enjoy your private sanctuary. Lots of pillows and good lighting. The works. We spend a whole lot of time in this space…make it yours! And, MAKE YOUR BED! Why? Because I feel that I get a more restful nights sleep…don’t know if it’s a psychological thing but I do.

2) Use it or Lose it

Get creative! Grap some old school crayons, coloring book and have at it. Not your thing? Crosswords. Wordsearch. War & Peace. Whatever it is that engages your mind. Do one little thing each day that unleashes those molecules in your head. Why? It’s a good distraction from a day spent in pain. It allows your brain to focus on something other than your pain!

3) Inner Peace

In your newly created safe haven of a bedroom, create a meditation space or a yoga space. I may read some scriptures or practice meditation {which is really hard for me, but ya gotta start somewhere}. Stop focusing on the busy and what you can’t do or didn’t do that day. I can easily wear myself out just shopping for groceries, so allowing myself a moment of quiet is spectacular!

4) Write it down!

Um, yeah, we fibro peeps have this thing called “Fibro Fog”. It’s not just your ordinary “why did I walk into this room”, it’s “how did I wake-up, drive a car and why did I walk into this room?” I am a huge advocate for personal planners (been making my own for a few years). I also found an app that allows me to monitor my pain and record what days are flare days and what the triggers were. It doesn’t have to be fancy. Just jot down your appointments and reminders. You’re gonna need it!

5) Acceptance

In preparing this post, I re-wrote this section a million times it feels like. I am a noobie with dealing with chronic illness but I also come from a family of recovering addicts and one of the hardest things to deal with in illness or addiction is acceptance. You will know when it happens. There is a “click” in your brain that suddenly changes your focus.

I have already written on how Chronic illness changed my life. With acceptance, I have come to understand my limitations, what is important and what to let go. This is not to say that I won’t have bad days. It’s not to say I won’t push myself on a good day and have to sleep 14 hours to make up for it. It means that I now have a new journey, quite different from all the rest. Most importantly, learning that this is my acceptance. Not acceptance of what I am going through from others.

That’s all I have to offer for now. Take what you need or leave it be…it’s all good 🙂

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