Type 3c (Pancreatic) DiabetesForum to ask questions, find support and share experiences with people with Pancreatic Diabetes (aka Type 3c Diabetes).Sun, 07 Jun 2020 09:44:36 +0000Sun, 07 Jun 2020 09:44:36 +0000Diabetes Forum • The Global Diabetes Communityhttps://www.diabetes.co.uk/forum/category/type-3c-pancreatic-diabetes.73/
New Creon Supply Problems 2020Tue, 02 Jun 2020 12:43:47 +0000https://www.diabetes.co.uk/forum/threads/new-creon-supply-problems-2020.174696/
https://www.diabetes.co.uk/forum/threads/new-creon-supply-problems-2020.174696/invalid@example.com (ImSpiritus)ImSpiritusApril 2020​Availability of Creon (Pancreatin) 25K
Mylan, the marketing authorisation holder for Creon in the UK, will experience a temporary and
limited supply constraint of Creon 25K in the coming weeks.
We are working closely with our wholesale partners to ensure an even distribution nationally of the
stock we currently have available and anticipate normal stock levels to resume at the end of May.
Creon Micro and Creon 10K continue to be available and Creon...

New Creon Supply Problems 2020]]>2Am I on the path to requiring Digestive Enzymes?Tue, 02 Jun 2020 11:52:21 +0000https://www.diabetes.co.uk/forum/threads/am-i-on-the-path-to-requiring-digestive-enzymes.174563/
https://www.diabetes.co.uk/forum/threads/am-i-on-the-path-to-requiring-digestive-enzymes.174563/invalid@example.com (KingXi)KingXi
This has been true for at least the last 6 months but over the past month, I've been having stomach pains every single day.

It started off suddenly as intermittent stomach pain more severe than a normal stomache ache I'd say and 80% of the time it's always on the right side of the stomach, 3-5 in pain to give it a rating.

Other...

Am I on the path to requiring Digestive Enzymes?]]>2Update ref Creons.Tue, 02 Jun 2020 11:42:12 +0000https://www.diabetes.co.uk/forum/threads/update-ref-creons.163232/
https://www.diabetes.co.uk/forum/threads/update-ref-creons.163232/invalid@example.com (ImSpiritus)ImSpiritus
“We had a delay in March with the manufacturing which has resulted in some areas of the UK being out of stock.
Just to reassure you and the patients, we are expecting a delivery this week so nationally all depots will be replenished starting 8th April then we have an additional delivery 15th April.
Looking at the supply plan we then have planned deliveries for May, June and July so I hoping this was just an...

Update ref Creons.]]>6Type 3c - how many are we?Mon, 25 May 2020 11:23:32 +0000https://www.diabetes.co.uk/forum/threads/type-3c-how-many-are-we.88261/
https://www.diabetes.co.uk/forum/threads/type-3c-how-many-are-we.88261/invalid@example.com (mrspuddleduck)mrspuddleduck158Type 3, catch 22Sat, 16 May 2020 14:45:31 +0000https://www.diabetes.co.uk/forum/threads/type-3-catch-22.174246/
https://www.diabetes.co.uk/forum/threads/type-3-catch-22.174246/invalid@example.com (Civilised Devil)Civilised Devil
Here is my problem, with the Pancreatitis, I was told explicitly to watch my diet, specificly stay away from fats especially red meat, as little fat intake as possible it agrivates the pancreas even with Creon and causes a flare up of the Pancreatitis. Last week I was Diagnosed with Diabetes The advice was stay away from Carbs...

Type 3, catch 22]]>13Shocking story, what kind of a situation am I in?Thu, 14 May 2020 21:07:20 +0000https://www.diabetes.co.uk/forum/threads/shocking-story-what-kind-of-a-situation-am-i-in.173577/
https://www.diabetes.co.uk/forum/threads/shocking-story-what-kind-of-a-situation-am-i-in.173577/invalid@example.com (KingXi)KingXi
I'm so thankful there is a forum where I can share my story with people dealing with the same disease as me in both Pancreatitis and Secondary Diabetes.

I mostly have questions in regards to my Secondary Diabetes but also would like to share my story of how I got here.

My Story.

I'm at 28 year old male who was perfectly healthy as of 7 months ago, I got a pancreatitis attack out of nowhere on a beautiful Tuesday evening in September, it started off as a normal...

Shocking story, what kind of a situation am I in?]]>24Covid-19Wed, 15 Apr 2020 15:40:15 +0000https://www.diabetes.co.uk/forum/threads/covid-19.173167/
https://www.diabetes.co.uk/forum/threads/covid-19.173167/invalid@example.com (Craigh82)Craigh822a book project on type 3cTue, 17 Mar 2020 03:57:02 +0000https://www.diabetes.co.uk/forum/threads/a-book-project-on-type-3c.170732/
https://www.diabetes.co.uk/forum/threads/a-book-project-on-type-3c.170732/invalid@example.com (Lee China)Lee Chinaa book project on type 3c]]>4HelloWed, 11 Mar 2020 14:59:35 +0000https://www.diabetes.co.uk/forum/threads/hello.172692/
https://www.diabetes.co.uk/forum/threads/hello.172692/invalid@example.com (sarah123456)sarah1234564New support groupFri, 06 Mar 2020 18:32:42 +0000https://www.diabetes.co.uk/forum/threads/new-support-group.170964/
https://www.diabetes.co.uk/forum/threads/new-support-group.170964/invalid@example.com (markb40)markb40https://www.facebook.com/groups/757213004762447/]]>7Alaways woken up by very low/high blood sugarsTue, 25 Feb 2020 12:02:48 +0000https://www.diabetes.co.uk/forum/threads/alaways-woken-up-by-very-low-high-blood-sugars.171391/
https://www.diabetes.co.uk/forum/threads/alaways-woken-up-by-very-low-high-blood-sugars.171391/invalid@example.com (lollyann1)lollyann1
Anyone else had experience of this?]]>12Hba1c 6.6Tue, 04 Feb 2020 16:18:12 +0000https://www.diabetes.co.uk/forum/threads/hba1c-6-6.169137/
https://www.diabetes.co.uk/forum/threads/hba1c-6-6.169137/invalid@example.com (lollyann1)lollyann13Feeling sorry for myselfSun, 12 Jan 2020 20:17:59 +0000https://www.diabetes.co.uk/forum/threads/feeling-sorry-for-myself.95915/
https://www.diabetes.co.uk/forum/threads/feeling-sorry-for-myself.95915/invalid@example.com (Shar67)Shar67
How can something so bloody small cause so much grief,.
**** you pancreas, if you don't want to work that's ok but there is no need to be so dramatic. That goes for you as well scumbag brain, you could be doing something more positive to help, no just oh I know what I can do I'll make her post on forum, not here have some endorphines.]]>8Hi from a new diabetic caused by necrotic pancreatitisSat, 07 Dec 2019 23:57:47 +0000https://www.diabetes.co.uk/forum/threads/hi-from-a-new-diabetic-caused-by-necrotic-pancreatitis.168733/
https://www.diabetes.co.uk/forum/threads/hi-from-a-new-diabetic-caused-by-necrotic-pancreatitis.168733/invalid@example.com (Twinkles)Twinkles
I am so delighted to find this forum.. I had acute gall stone pancreatitis two years ago. I was in hospital for two months and had a massive cyst. I dont take creon but I am now diabetic. I think this illness traumatised me! So healthy then basically so ill i was tube fed for six weeks. It is still pretty much in my head. Diabetes was the last thing I wanted to have but...ahem....here I am. Blood sugar down from 25 plus to about ten with glyclicide twice a day. Lost...

Hi from a new diabetic caused by necrotic pancreatitis]]>5Beger'sSat, 30 Nov 2019 17:12:23 +0000https://www.diabetes.co.uk/forum/threads/begers.170209/
https://www.diabetes.co.uk/forum/threads/begers.170209/invalid@example.com (lollyann1)lollyann11Pregabalin for Nerve PainFri, 27 Sep 2019 15:35:04 +0000https://www.diabetes.co.uk/forum/threads/pregabalin-for-nerve-pain.165183/
https://www.diabetes.co.uk/forum/threads/pregabalin-for-nerve-pain.165183/invalid@example.com (lollyann1)lollyann1
I now know it can cause Hypo's because I have experienced very low blood sugars on a daily basis since being prescribed a higher dose. My legs and ankles have swollen up like balloons and I have tremor. So much so with the latter that the kettle flew to the floor following great tremor in the arm.

It may have eased my nerve pains in my legs and sacrum which were serious but the bad side effects of...

Pregabalin for Nerve Pain]]>9Tips to lower hba1c?Mon, 26 Aug 2019 10:08:13 +0000https://www.diabetes.co.uk/forum/threads/tips-to-lower-hba1c.163556/
https://www.diabetes.co.uk/forum/threads/tips-to-lower-hba1c.163556/invalid@example.com (_becs)_becs
Has anyone got any tips to help lower hba1c?
I seem to get told to lower it but not advised how other than try to bolus 15 mins before eating and extending the bolus.
Found it more difficult since starting creon and just changed to Omnipod pump from Animas.]]>5Acute pancreatitis and diabetes medsTue, 20 Aug 2019 06:58:20 +0000https://www.diabetes.co.uk/forum/threads/acute-pancreatitis-and-diabetes-meds.166502/
https://www.diabetes.co.uk/forum/threads/acute-pancreatitis-and-diabetes-meds.166502/invalid@example.com (danh1977)danh1977
A couple of years ago I had acute pancreatitis, which involved a week in intensive care and a couple of weeks in a high dependency unit. The cause was a gallstone blocking my bile duct, needless to say this was removed and a few months later I had my gall bladder removed.

Unfortunately, I was advised that I had necrosis of the pancreas and that at some point down the line I would need to take insulin....

Some way down the line was approx. 6 months.
I am currently take metformin SR...

Acute pancreatitis and diabetes meds]]>7Type 3c (pancreatic) DiabetesTue, 16 Jul 2019 16:23:23 +0000https://www.diabetes.co.uk/forum/threads/type-3c-pancreatic-diabetes.164415/
https://www.diabetes.co.uk/forum/threads/type-3c-pancreatic-diabetes.164415/invalid@example.com (Deb1591)Deb1591
I have exocrine pancreas insuffiency and 'type 2 diabetes' I take Creon plus 2000mg prolonged release Metformin. I have been taking these meds for the last 3 years. I also have hashimoto's, b12 deficiency and hypertension, under control with medication).

In 2018 my A1c was over 10% due to medication not absorbing (thyroid was all over the place as well) I...