Friday, September 11, 2009

Last night was HORRIBLE!

Okay, let's just start off by saying I'm glad we let Baylee sleep with us for a few nights while she was sick, BUT it made last night awful putting her to bed. IN HER BED!

8:30 pm - Baylee was screaming and woke Blair up when we were putting her to bed.

Midnight - She came in our room and wanted to sleep with us. Britt was putting her back in her bed and I could hear through Blair's monitor that this was NOT going well! Baylee woke Blair up again and I HAD it! I flew to the other side of the house and started yelling! Yes, I do yell people and it wasn't pretty. Britt asked me the next morning if I felt bad and to be honest maybe a little, but there really was no reason for her to be screaming like she was to the point of waking up Blair.

2:30 am - Once again she made her way to our side of the house and woke Britt up. She pee'd in her bed so she HAD to sleep with us! UGH! I think she did it on purpose! :) That woke me up and then I couldn't get back to sleep.

We had to get up early this morning (well, early for me and the girls) to take Baylee to the ENT.

That appointment went well. She is going to schedule another sleep study. One that is more under normal circumstances. She, of course, doesn't want to go in and do surgery. I don't think she really agreed with the Hypertension Specialist's theory of "When in doubt we take them out". I agree with the Hypertension Specialist and think if it's worth it then we should just do it. But, we will just see what happens with this 2nd sleep study and go from there. They also checked her ears and the fluid was gone.

Baylee hasn't ran a fever since yesterday morning... THANK GOD! I'm so glad it was just viral!

Tonight I think we are going to watch my friends son race BMX bikes. He just started and is so excited about it! This will be the 1st time we've been to see him. I guess they just started last week.

Tomorrow Baylee has pageant practice. The fair pageant is next weekend and she is so excited. I think she is more excited about going on stage by herself than the actual pageant. I will have pics to come after that! Wish her luck!

I read in a parenting book (can't believe I ever read those) that when you want your child out of your bed you should put down a palette on the floor next to your bed. Tell the child that if they want to come in your room they have to sleep on the palette.

I don't know if that's any good. Charlie's in our room every night (his mattress is on the floor) so I'm the last person to know diddly about getting kids out of your room.

Wish I had good advice for you--but Mia still comes to our bed around midnight every night, and you know what? I don't even care anymore. It's probably not the best thing I've ever decided as a parent, but I gotta get my sleep. Plus, Merrick and Mia share a room so even a whimper out of Mia would have them both up and screaming and that's just not my world right now.

Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!