Darlene that is great information. It really explains a lot. My dr had to increase my blood pressure meds and I had to start Viagra this stupid condition is causing soooo many other issues besides just the daily pain . I'm hoping & praying that someone somewhere can get us some help one day.

Johnathan, thanks, it really helped me to understand more what was happening to my body. 'autonomic nervous system' 'sympathetic nervous sytem' parasympathetic nervous system, 'vegas nerve' online really helped me understand. not only does these systems regulate our body temperature-hot vs cold, heart rate, high vs low , blood pressure, high vs low. these areas can swing wildly- it's the flight or fight response in our body. why also we experience anxiety with this disorder. also affects digestive tract-slows it down. it explains why it affects the 'personal' areas of our body. there is a chart online when you look up these words.