This is the blog for Gavin and Carrie Jones and family. We live in Papua New Guinea and are working to support Bible translations in progress around the country. Gavin is a helicopter pilot. Carrie has her degree in Public Health, but her "public" now consists of our ten-year-old, Isaac, and our two-year-old quintuplets, Will, David, Marcie, Seth, and Grace.

But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

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Thursday, October 11, 2012

Seth struggling more today

Hi faithful friends, family, prayer warriors and caring "strangers,"

Seth has had a rough night and morning. He keeps de-satting (referring to his blood oxygen saturation) way down into the 50s, 40s and even 30 percent range, whereas before he was holding steady in the high 90s. He's down to only 5 ppm on the nitric, having started at 20 ppm before the weaning began, and it was around 6 ppm that he started struggling. The nurse practitioner and neonatologist have assessed him and are checking into getting another echocardiogram possibly to check on his heart. They're also going to consult with pulmonology to see if it would be wise to start another vasodilator drug that can "take over" for the nitric and allow them to get him off. They don't know why he's having these deep de-sats, beyond the fact that it may be the surfactant gene mutation, of course. (Those with experience with ABCA3, please feel free to comment!)

He's also more agitated today; the nurses have orders to give him more meds as needed to help with that. Thank you so much for praying.

Holy Father, Creator of the Universe, You hold little Seth's very being in Your Hands. Please, we pray, heal his lungs. We are asking for a miracle for Seth eiither directly from You, or through the doctors and others caring for him. He is your precious child, dear Lord, a gift from You; please let his time on earth continue and let it be healthy so that he can proclaim Your mercy and grace and be a blessing to his family. We praise You, Lord, for all the mercies and blessings You have shown the Jones family, and thank you for hearing our pleas on Seth's behalf. Amen. NKL