Summary

The purpose of this study is to evaluate in a randomized controlled trail, an innovative
cancer communication strategy to help African American breast cancer patients cope with a
variety of challenges during and after treatment and to better adhere to recommended
treatment guidelines and follow-up care.

Study Design

Women in the Survivor Stories intervention arm will be given the Survivor Stories Tablet to take home for two weeks at three different time points over a two year period.

the survivor stories tablet

The Survivor Stories Tablet is a tablet computer where participants can browse an archive of 1-3 minute videotaped survivor stories told by African American Breast Cancer Survivors. Stories contain five main topics: coping, relationships, experiences with the health care system, follow-up care, and quality of life (QOL) living with breast cancer.

The Survivor Stories Tablet is a tablet computer where participants can browse an archive of 1-3 minute videotaped survivor stories told by African American Breast Cancer Survivors. Stories contain five main topics: coping, relationships, experiences with the health care system, follow-up care, and quality of life (QOL) living with breast cancer.

Primary Outcomes

Measure

Determine to what extent African American breast cancer survivor stories affect various aspects of QOL, including depressed mood and concern about recurrence, among African American breast cancer patients following primary treatment.

time frame:
Outcome measures are assessed at five time points: baseline, one month following primary treatment surgery, 6 months, one year, and two years post surgery.

Additional Information

Official title

Survivor Stories: Impact on Cancer Patients' Quality of Life and Follow-up

Principal investigator

Donna B Jeffe, PhD

Description

Disparities in incidence and mortality between African Americans and Caucasians for a number
of cancers have been well documented. This study builds on previous work in St. Louis to
overcome barriers to access to breast screening, identifying and addressing factors
associated with access to care once diagnosed, and factors contributing to delay in
diagnosis and completion of therapy. African American breast cancer patients randomly
assigned to the intervention arm of the trial will have access to the Survivor Stories
Tablet, a tablet computer, on which they will browse an archive of 1-3 minute videotaped
survivor stories about five topics: coping, relationships, experiences with the health care
system, follow-up care, and quality of life (QOL) living with breast cancer. Patients will
have the tablet for two weeks after enrollment in the study, and again at 6 and 12 months.
Patients in the control arm will receive usual care.

Trial information was received from ClinicalTrials.gov and was last updated in February 2015.

Information provided to ClinicalTrials.gov by Washington University School of Medicine.