Duane Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Duane Syndrome. You're not alone.
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since I was born. Because of my Duane syndrome it means I can't move my left eye at all to the left. This really annoys me because it effects my site making everything double vision. Lots of people take fun of me because they think I have a lazy eye. Duanes also makes it hard...

I have been diagnosed with type 1 duane syndrome. It's in my both eyes but you couldn't notice it in my left eye. I have known I've had it as long as I can remember. My mom had to visit several doctors to find out what was wrong with my eyes. Doctors kept saying there's nothing...

Hey. I'm 13 and my right eye doesn't turn right... I've always wondered, will I be able to drive
If you know the answer please comment
I've always been name called a bit but it doesn't bother me because I know I'm smarter and stronger than them.

I was diagnosis with Duane syndrome when I was 8. It was pretty much went through hell trying to figure out what was wrong with my eye. All through elementary school I got made fun of because in 3rd my teacher decided to tell the class about my eye and made me sit up front the...

Ever since I started school, I've been bullied for having Duane Syndrome. It's calmed down now that I'm 15 and that people have started to mature, but it hurts. When I was in around 8, I can remember people calling me a 'cross eyed freak' and '**** eyed' or one time, I turned...

I to .have duanes syndrome and nystagmus in other it would be interesting to know if any one who has duanes can wink with duanes eye I cant and I have been on other sights and askd other people can they,all came back with same answer they cant I wasnt diagnosed until I was in...

and live in Finland, since i havent told anyone ever about my duane's syndrome type 1 i tought it would be a good idea to share my story here. I was born with it, between 1th and 5th grade i got teased about it from older guys in our school, it kept on going for a few years and...

Hey everyone! My name is Brian and I was diagnosed with Duane Syndrome in both of my eyes at age 2. I am unable to abduct (turn outwards) in with both of my eyes! DS is a very rare condition to begin with, and 99% of the time it affects only one eye...so I guess I'm lucky? DS...

Hi everyone, I've had Duane Syndrome since birth but wasn't diagnosed until a few years later. My parents thought that I just had a lazy eye. I have it in my right eye and it isn't as severe as some of the other posts I've read about it. I didn't have to have surgery on my eyelid...

type 1. It affects my right eye primarily. I have had surgery only once for a droop lid. I am struggling with cataract development now at age 42. I was not diagnosed until I was in my 20's. I am struggling with how to deal with it now as an adult in my working environment...

I am 19, i was diagnosed with DS around 7, I lost most of the vision in my left eye around 10, the condition is in my right eye, which is rarer from all the sources i have read. I have noticed all my life that i have severely reduced peripheral vision in my right eye. I was...

... Is what I commonly got asked all throughout my schooling experience. I was born with type 1 Duane Syndrome. Now that I'm 18, people accept it more and enjoy asking questions about it, and aren't as immature. When I was a kid in 6th or 7th grade, I hardly understood it myself...

ive had three surgery and it looks kinda better but still points down a bit. i went to see a specialist and he said he would make me an appointment for a surgery and then i called and they said he didnt>.< ugh doctors make me mad sometimes. is there anything that i can do...

eye when I was just a baby, when my Dad noticed I couldn't move my eye. From a very early age I remember being in the hospital seeing specialists and having all sorts of eye tests, drops in my eyes, was given eye patch stickers to wear over my strong eye. I hated it. I'm lucky...

hi. my 5 year old son has duane syndrome. as a result he has a tendency to turn his head to the side. i am worried that his neck muscles will be shortened as a result. is there anything that i should be doing to prevent this? maybe physiotherapy?
also he tends to "neglect" the...

after 4 years of trips to the optometrist. I'm 23 and only noticed it in the past few years & it's gotten worse in the past 6 months . Unless I tilt my head down I see everything in double. I have to sit across from people, if I sit next to them at a table I get asked 'what's...

I'm 21 and I got diagnosed with DS when I was 8. Never really had any problems with it. I learned to turn my head with it. As of the past year I'm starting to notice that my left eye (that's the one with DS) vision is getting worse. I no long have any perifural (probably totally...

hi i have an 8 yr old daughter with duane syndrome... i noticed something was wrong b4 she was a yr old... when she was little i would pretty much teach her that kids r mean n they would pick on her cuz of her eye so we made it a joke so she wouldnt b self conscious bout it...

I came across this site and figured I would put myself out there as a means to connect with others who share this extremely rare condition and additionally, extend support to those who may be struggling with the associated self conscious effect it may have.
I was diagnosed when...

a surgery where they move one of my muscles in the affected eye back to help with the retraction when I look to the right and also to straighten my 15 degree head turn. I'm really nervous for the surgery and was wondering if anyone has had it done as an adult and achieved...

Okay, I have now been to the hospital and have been given all the information on surgery and what will and could happen if I do or don't have it done. The stats are low, only 25% of people who have it done see any sort of improvement and some of the other 75% wish they had never...

I also have a minor condition of Duane syndrome in my left eye. I had one correction surgery in the past. It is difficult for me to talk to other people about it because they simply don't experience it. Furthermore, in high school i tried to avoid negative people and would...

My three year old son has Duane's Syndrome - type 1, in his right eye (which I understand is slightly unusual - usually it's the left eye).
He was a premature baby, and also was growth-restricted, which means he wasn't growing properly in the womb. He was only 3 pounds at birth...

Syndrome in my left eye. I am 39 years old and was diagnosed in my late 20's. My story is a very sad one, but I thought I could share so if anyone out there is feeling like me they know they are not alone. I was never teased in school. I was very popular. Even in high school I...

My 7 month daughter was diagnosed with duane syndrome a month ago. First the dr thought it was lazy eye. Its very hard for me because I don't want her to suffer. I know how cruel kids can be and I dont want my baby girl go thru that. I have some questions: does the eye patches...

My 2 year old son has Duane's syndrome, I still have lots of questions about it. It's in his left eye, and his eye does not turn out, it just stops. I was wondering if there are any ways I can help make things more comfertable for him because I know his eye bugs him, because he...

I am actually glad that I am not the only one going through this condition. I been having DS for as long as I can remember, but I only found out what it was called just recently. As most people, I have DS on my left eye. It doesn't move outward, but my right eye is perfectly...

Syndrome (Type 1) at a very early age as the first few weeks I was born were scary for my mom because she's told me about my left eye staying closed for that entire period of time. I had a normal early childhood but right about the time of entering 2nd grade my vision became an...

and I have it in both eyes. Just a few months before that I had a brain tumor. I can not begin to image what kind of stress this put my parents under. Growing up, it didn't really hit me that I couldn't move my eyes. None said harsh comments or treated me different; the only...

I have out up with so many people making fun of me it is hard especially these last 2 weeks but today was my last day of seventh grade and it was all summer from there At lunch today i sat in front of all of the people that make fun of me because my Friends were at the...

Hey ya'll. My name is Taylor and I am a 15 year old girl. I have had Duane Syndrome since I was born but, was diagnosed when I was 4ish. I have type one which is most common. When I look to my right without turning my head, is when you can tell I have Duanes in my left eye. I...

I was diagnosed with Duane's syndrome at about six months old and it never caused me any problems for years. Sure, some people sneered or didn't like it or commented but I just tried to shrug it off. Only being able to move one of my eyes inwards was my party trick. But recently...

Hi everyone!
I also have duanes syndrome, as it is something I have always had it never really bothered me at first. In school people who sat behind me used to call my name so I would turn around and I would hear them go 'look she goes cross-eyed'. At the time it was really...

I was just wondering If anyone who has had or considered the correction surgery if someone could give me the approximate cost before insurance because I have been contemplating this for a while now and I want to know to help me make my final decision

I take great pride in being unique. Everybody has their quirks. Not many can own up to this one. I have type A in my right eye. I have been fortunate not to need surgery as my eyes function perfectly while looking straight. There are no signs of being cross eyed unless I'm...

I am 45 years old and all through childhood was simply told I just had an eye condition. The doctors never knew how to diagnose it or what to call it so it is comforting after all these years to learn that what I have is not only rare but it also has a name! I have Duane...

I am a seventeen year old girl with Duane's syndrome in my left eye; I am pretty sure it is type A. I never even really noticed and it didn't bother me for my entire childhood. Then I hit Junior High- whenever someone would decide they didn't like me it would be the #1 target of...

I have this syndrome I have had it since I was a baby. I am aware that it is rare condition and rarer still in males Ive neverreally been picked on about it as a youth how ever I Have always been aware when others have noiced it. I am a man now I still have the condition more...

Hi :). When i was real young i was dignosted with duane syndrome. My mother really didn't think anything was wrong with me until i turned about 3. But none of the docters knew what was wrong with me and they were concered, so they went and looked further into why i couldnt turn...

I was diagnosed with ds at around 2 months old. my right eye is affected which every doctor ive been to and evry article ive ever read, says is rare because it usually happens in the left. I was always really shy because of it. I didnt want to have conversations with people...

There are three types of Duane Syndrom. I have type one wich is when the eye does not move out towards the ear. Type two is when an eye does not move in towards the nose and type three is the worst. This is when your eye(s) are in a fixed positin when you cannot look either left...

both of my eyes when I was around 6 years old but it only started to seriously impact my life when I was 12. From what I remember my vision used to be great and I only had to tilt my head back to focus on distant objects, however that's not the case anymore. My vision over the...

Yh I have duane syndrome in my left eye I'm 13 btw. I don't get double vision or anything. I get friends am quite popular so I doesn't really matter much. I love sport and studying, hence my popularity. It can make you quite shy but you will overcome that.
I'm a boy. And...

My lil girl was diagnosed wit Duane Syndrome at around 7 months. She'll be 3 in July. I noticed around when she was 4 months, which is the time most infants begin to focus on objects, that she tilted her head back alot & wit that parent gut feeling knew somethin wasn rite, told...