Posts in category Books

There are numerous parenting books available for parents offering advice on how to best care for their children. However parenting a child with a chronic illness poses additional challenges and the need for greater support. The demands of everyday day life are complicated and pushed to the extreme with the added pressure of medical appointments, […]

Strong at the Broken Places by Richard M. Cohen is the remarkable story of five ordinary people trapped in the difficult and challenging world of serious chronic illness. Cohen spent three years chronicling the lives of five diverse ‘citizens of sickness’: Denise, who suffers from ALS; Buzz, whose Christian faith helps him deal with his […]

Louise Marley’s novel The Glass Harmonica tells two parallel stories. The first begins in 1761 and concerns a young orphan named Eilish Eam, who earns her keep by playing music on water-filled glasses on the streets of one of London’s poorer districts, until she is discovered by Dr. Benjamin Franklin. Impressed with her talent, he […]

In 1990 Dr Susan Perlman, a clinical Professor of Neurology at UCLA and Director of the Genetic Neurologic Diseases Clinical Programme, the Ataxia Centre and the Post-Polio Clinic and Nadia Hamed, Nutritionist created ‘Nutrition and the Patient with Progressive Cental Nervous System Disease‘. Revised this year, the manual is an essential guide to good nutrition, […]