It has been a very long time since I posted on this Forum so I will reintroduce myself. I am an American but have lived most of my life in Italy where my husband, Renzo, was diagnosed with LBD exactly 4 years ago. On April 25, 2009 I moved Renzo, myself and my dog, Ugo, back to the USA after 40 years. Primarily the move was for me to be closer to my family. I am not sure I made the right move but here I am. I have been posting on the Caringspouses Group for many years but I no longer felt welcome; in fact I felt very unwelcome.

Renzo is probably in stage 3 and although is still mobile is showing serious signs of deteriorating. This past month he fell from bed, banging his head. Two days later he began having seizures which we are keeping under control with anti seizure meds.

This is more than enough for a first post. I look forward to getting to know you. IreneM

Irene,Re-Welcome! I am glad you came back, you will see some familiar names here !

_________________Irene Selak

Fri Dec 17, 2010 8:40 pm

Leone

Joined: Wed Oct 28, 2009 11:53 amPosts: 969Location: Ocala, FL

Re: Returning to Group

It's so good to see you here, Irene (M).... I am personally thrilled! Welcome back. I also returned here after a period when I thought I knew everything. (joke, joke) I came back when Dale took a downturn and I wanted more answers. I have found a home here and absolutely love the format. I hope you will be as happy here as I am. (((((big hug)))))

_________________Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Fri Dec 17, 2010 8:53 pm

BernieD

Joined: Thu Dec 02, 2010 1:44 amPosts: 93

Re: Returning to Group

Hello, I am new to this forum but was a member of the LBD Caregivers site. I was not welcomed anymore at the Caregivers site. This is because I am a bit unconventional in my out look on life. My husband Fran was finally dx with LBD this year, although we have been fighting this disease for almost 12 years. He had many wrong dx during this time. I am guessing that he is now in stage 4. He has very poor motor control, dementia, hallucinations and delusions. So glad to be able to post once again. Bernie

Nice to see you posting again though you've changed your username! I remember everyone fondly from the "EricSEA" days.

As I recall, the initial diagnosis for your husband seemed somewhat uncertain as he hadn't had any hallucinations. Have things changed in that regard??

I didn't know you had moved from Italy. Have you found a good MD for your husband?

Robin

Fri Dec 17, 2010 9:29 pm

LTCVT

Joined: Fri Jan 15, 2010 9:33 pmPosts: 3441Location: Vermont

Re: Returning to Group

Welcome to both of you and sorry for your need to be here. But, this is indeed "home" to any number of people who find it a "soft place to land" and great source of information as well. Hope you are here often. Lynn

_________________Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Fri Dec 17, 2010 9:41 pm

Leone

Joined: Wed Oct 28, 2009 11:53 amPosts: 969Location: Ocala, FL

Re: Returning to Group

Welcome, Bernie! It's really nice to see you here. I hope you will really feel at home. I look forward to reading more of your keen sense of humor again. I know I will enjoy your posts. You have been a good friend and I'm so glad you've joined us here. (It will be fun to laugh again with you! We all need that!)

Bernie, Welcome to the LBDA forums I hope you will find comfort here !

_________________Irene Selak

Fri Dec 17, 2010 10:59 pm

mockturtle

Joined: Wed Dec 30, 2009 1:46 pmPosts: 3213Location: WA

Re: Returning to Group

Hear, hear!!!

_________________Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Fri Dec 17, 2010 10:59 pm

sher

Joined: Tue Aug 17, 2010 9:20 amPosts: 184Location: So Cal

Re: Returning to Group

Since it has been mentioned..........I joined the spouses forum but felt too much animosity as I read the posts. I'm sticking to this one, I'm too easily hurt these days......Sher

_________________Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.

Your post, Sher, could have been written by any one of us. We are all wounded by this disease. I'm sending a cyber (((((hug))))) to you and all those who are hurting but don't say so. I hope we can all help each other feel good about ourselves. We are all vulnerable.

I've always been here as this was the first forum , like most of the rest of you I no longer feel comfortable at that "other site." But I lurk there and read) I, too, am glad the rest of you are here. Smiles, Nan

You cannot post new topics in this forumYou cannot reply to topics in this forumYou cannot edit your posts in this forumYou cannot delete your posts in this forumYou cannot post attachments in this forum