2 comments:

dear tracy,calvin's mom here. i saw this link to your photo blog that tiffany webb shared on facebook. she and matt filmed my seven year old boy, calvin, last spring. i love your story—that you got your phD in neurobiology! whoa! so great. since calvin's epilepsy diagnosis i often think i could have been a doc. instead i am a writer. i invite you to read and share calvin's story. i post something every day. http://www.calvinsstory.comperhaps some day we can meet. are you on facebook?thanks for your efforts on behalf of our children who suffer. xoxo, christy

Hi Christy. Thanks for your comment. I read your blog. Very moving. Thank you for sharing your story. So sorry to hear about Calvin's seizures. :( How's he doing? I am on FBook. I will send you a friend request.

Followers

Total Pageviews

About Me

I answer to lots of things but 'Mommy' is my favorite. Savannah's my daughter, my muse, and my sunshine. She teaches me everyday to smile, laugh, and love with total abandon. For her, for my family, and for the future Savannahs out there who will develop intractable epilepsy, I have dedicated my life to epilepsy research. We must find a cure. I love you Savannah.

Savannah's Story

As a toddler, Savannah was happy, silly, strong-willed, and full of love. She developed normal until the age of 2 years when she had her first seizure. She had a few seizures and then went 6 months without having any.But at age 3, the seizures came back and with a vengeance.To this day we have no idea why she started having seizures and nothing has worked to control them.

Savannah is now 18 and has had over 25,000 seizures.Epilepsy moved into our lives uninvited, unannounced, and continually attacks that which is most precious to us – our child.But we refuse to wallow.We’ve somehow managed to survive.Somehow I managed to finish school and get a PhD in Neurobiology.Combined with the PhD I’m pretty sure I have in Epilepsy, I somehow manage to do epilepsy research at a great University.We must find a cure for this horror.And we must hurry.

Today, Savannah is still happy, silly, strong-willed, and full of love.She smiles, despite her epilepsy, and teaches others to smile too.This blog is to remind us to never lose hope, never give up, and never let epilepsy take our smile.