... The only think that keeps me thinkin i dont have als is my age 28 and after 7 months of my smptom onset i have no strength changes i seem to be getting stronger or the Same as i always have been and even like u said changes in the motor nuerons happen before weakness but im sure i would of had some sort of clinical weakness , and i obvious have no umn problems with 2... (9 replies)

... the average time from symptom onset to death or permanent ventilation in bulbar ALS is 6 months to 2.5 years. I mention this because being in good health after a year points very strongly away from bulbar ALS. ... (6 replies)

... people's stories I went into panic mode. By the way, I'm only 26 years old and I have always been healthy up to this point. Also, I read somewhere that bulbar onset symptoms almost ALWAYS start out with speech difficulties first. I don't know if I mentioned in the previous post but this all came on sudden as well. ... (2 replies)

... I'm in the same boat that you are - my mother was diagnosed with late stage bulbar onsetALS on 3-16-2012. Hospice started on 3-19-12. 24/7 in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. Mother works to get down what she is able to "eat" at this point (from a... (5 replies)

... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. thanks god for friends andmy son (5 replies)

... have a shooting pain that comes out of the blue many times a day. On top of all of this, my neck has been hurting really bad, and I am hoping that it is not an ALS symptom because I have read that people with ALS can find it difficult to hold their head up. I am really scared to death. ... (6 replies)

... I just turned 49 in December, and have been having strange symptoms in my tongue and throat, plus on/off labored breathing over the past 2 months. Can someone help me with some of the initial symptoms of bulbar-onsetALS?
If the breathing is effected first, is it an on/off progression, that is, once the labored breathing begins, will it stay labored due to the muscle... (6 replies)

... I am sorry to hear of this new diagnoses. My father passsed away last year from Limb onsetALS. He lived with ALS for 22 months after his diagnoses. He had symptoms for much longer though. Like your father, his symptoms started in his legs and also his feet. ... (3 replies)

... e symptoms usually happen in people diganosed with the bulbar onset. Sometimes you will get those symptoms "later" in the disease if you were diagnosed with Linb onsetALS. My father just recently passed away from limb onsetALS. He also was taking lipitor and had the same symptoms you describe. ... (2 replies)

... The only thing that even vaguely evokes thoughts of ALS in your story is the gait disturbance. In ALS, however, the disturbance is due to muscle weakness that your neurologist would have easily found. ... (2 replies)

... Hi,
Your new onset of excessive sweating (hyperhidrosis) could be related to changes in the autonomic system. Scientists are just beginning to really look into autonomic changes as early markers for the disease. My husband was recently diagnosed with Respiratory OnsetALS (aggressive) because of dyspnea on exertion and inappropriate fatigue for the task. His hyperhidrosis... (5 replies)