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Episode 160: The Audacious Goals of the Isabella Santos Foundation

We sat down with Erin and Rachel of the Isabella Santos Foundation to learn more about the organization, how it has grown and what the future holds for it. We also learned the history of Elizabeth College and recorded the worst supportive words of all time.

Isabella’s presence is POWERFUL.In David Lieberman’s case, his nieces went to Calvary with Isabella.David’s sister-in-law shared Isabella’s story with him, and he has been involved with ISF ever since.

First it started off that his family participated in the annual ISF 5K every year.“It felt tremendously good to be a part of something bigger than me.”As David’s passion grew stronger and stronger, he continued to give back to ISF on a much larger level.Giving back to ISF is “an opportunity to play a small role in the lives of people that are dealing with pediatric cancer.”

Even though David’s family has not been affected by cancer, he has known people who have battled it during their lifetime.“It is highly probable that cancer will take someone that I love so I am choosing to be proactive in the fight to find a cure.”

David became an ISF MIBG Ambassador, with a goal to raise $5,000 for ISF.You can help David reach his goal by participating in his raffle.For $20, you receive 2 raffle tickets where you have a chance to win great prizes and gift cards.Winners are announced on November 3rd.For more details, visit www.JoinDavidFightCancer.com.

Levine Children’s Hospital will now be 1 of 20 hospitals (and the first in the region) to have a MIBG Treatment room in the U.S.The two-room MIBG suite, which will include a lead-lined patient room and an anteroom for parents and caregivers, will provide targeted radiation to pediatric neuroblastoma patients and other rare pediatric cancers with minimal side effects.As the new MIBG treatment suite continues to progress under construction, we want to ensure that we are preparing for the kids and families who will be entering this program.New in 2018, we have developed a fundraising program focused on MIBG Therapy – the MIBG Ambassador.Our goal for 2018 is to have 20 members collectively raising $100,000 for this initiative.If you are interested in becoming an MIBG Ambassador, please email info@isabellasantosfoundation.org.

25,000 lbs of lead bricks… that’s a whole lot of lead. But that is the necessary requirements to protect and manage MIBG Therapy safely for patients, family and staff. Construction of the ISF MIBG Treatment Suite at Levine Children’s Hospital is progressing on schedule. We got another peak at the room and how far it has come since we were there in early July and got to talk with MIBG Therapy Program Lead, Dawn, about her MIBG training and mock trial plans once construction wraps up. We are getting close!

10,000 pounds of lead brick has been installed in the adjoining wall between the patient and parent room. Back in March when we announced the Therapy Suite, many of our 3 Wish Circle Members and sponsors signed a lead brick to commemorate the significance of their part in bringing this type of therapy to our region. What was also special, doctors and nurses who treated Isabella during her time at Levine Children’s Hospital were in attendance and signed the brick. We were excited to see where the ISF signed lead brick will be placed in the patient/parent room dividing wall (white brick in photo)… drywall goes up next week and it will become a lasting print in Levine History!

Over $21,000 has been raised by our ISF MIBG Ambassadors. Want to be part of providing comfortable care for the kids/families that go through MIBG Treatment? Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

For National Running Day we are offering a $5 off coupon for our 10th Annual 5k/10k For Kids Cancer on September 30th. Take advantage and get signed up today! Discount available ONE DAY ONLY (June 7th).