Saturday, March 2, 2013

Last Titration

Dear Lucy,

Well, here goes nothing. It's time for me to start my last titration. Now I will be taking 90mg of my tolvaptan in the morning, but my evening dose stays at 30mg. I'm going to the bathroom once an hour, sometimes twice. Not often though. I am waking up in the night to pee maybe 3 times, but thirst is waking me up 5 or more times. I believe this is the highest dose they prescribe of tolvaptan. Mommy may need to borrow a diaper! Haha! I love you sweet girl!

3 comments:

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Hi Jamie. I'm researching a little more about PKD my brother was hospitalized 5 days ago, the doctors found that he have PKD, his kidney are not working right. He started dialysis three days ago, He is just 35 years old. Is tolvaptan working with you?

About Me

I'm 26 years old, I have bilateral polycystic kidney disease, and I'm the mommy to a wonderful little girl. I'm starting a trial drug called Tolvaptan, in hopes of prolonging my renal life. I'm starting this blog to my daughter to inform her. To let her know everything. I lost my mom while I was pregnant with Lucy. It has been a wonderful and horrible two years without her. Horrible because she's gone, wonderful because Lucy is here. I have dealt with a brain tumor and PKD. I lost both of my parents before I was 25 and I'm still here. It's just me, my husband, and Lucy. This is our life. I hope others can see these letters. I hope people with PKD will find hope and encouragement. I hope people that don't have pkd will get a real understanding of this disease.