I have mctd (lupus, scleroderma and polymyositis) and had stage 2 kidney disease. The diagnosis was proteinuria and I ballooned up 2 times with 15 lbs due to edema in just a few days. The nephrologist treated me with lisinopril and got things in line within a few months. My kidneys function totally normally and I still take a low dose to make sure they continue to function properly. I was lucky that my doctors were so observant and aggressive. No problems today.

Welcome to the forum. I have end stage kidney disease secondary to Lupus. What are the plans for your treatments? Are you taking any meds? I would be happy to answer any questions I can. God Bless yOU, judy

texasrose, I also wanted to welcome you - we have a great group of people who are very supportive. I'm really sorry to hear about your kidney problems. I had some very mild kidney issues for a little while, but they resolved. We do have people here who have kidney disease and even some who have had transplants. Please ask any questions you have.

hi texasrose, i would one of the ones with kidney problems and i am also one of the ones that had a kidney transplant. when i was diagnosed in 1995 (then 13 yrs old) they did a biopsy and found me in late stage 3 very close to stage 4, but my pediactric nephrologist was very agressive with my disease and he was able to keep me from ESRD. in the first couple of years after i was diagnosed i flared up 2 twice before i graduated high school. i almost had to have a transplant in '98 and i was also on dialysis, but for some unknown reason my kidneys started working again and i didnt need the transplant. from '99-'03 i was in remission and it was great. i was taking maintance dosages of prednisone and i was also taking plaquenil for the lupus and every was going great until the fall of '03 i went into a flare and my kidneys never recovered so in the spring of '06 i ended up having a kidney transplant (my dad was my donor) and i actually just flared in march of '07. so for me it has been a long, hard, bumpy road but i'm still here fighting. i actually have avascular necrosis from the prednisone and they are talking about knee and ankle replacements and core decompression for my hips. i know all this probably sounds really bad but unforunately this was and still is my experience with my lupus nephritis. this last flare was really bad though because the docs said that it was possible with the new kidney that i wouldnt flare anymore but apparently i am in the 10% of transplant patients where they actually still flare after the surgery, but i have my support system and i am seeing a pyschologist who is helping me cope with my emotions and the docs put me on anti-depression meds, but remember no one person with lupus is the same. you may or may not have the complete opposite experience that i have. good luck we're here if you need us. and welcome to the forum you will find some wonderful people here, i know i have, i dont know what i would have done if i didnt find this site, i actually wish i found it when i was younger and so confused and feeling so alone with my disease.Hugs and prayers,Ifit was easy being a lupie,

My prayers to you texasrose, judy, Bill, and Suzanne! I have some strange kidney issues also but not as serious as you describe. My issues seem to resolve on their own, for now and, hopefully, always. From what I am learning on this site, based on the experiences everyone shares, it seems key to make sure you have an aggressive medical team (rhuemy, kidney specialist, family doc, etc.) when dealing with the strangeness of lupus. Never give up. Stay strong!

Thank you all for your response and sharing. I heard this one and it hasn't left me probably because it easy to remember and it is simple. "stand up, look up and never give up". Although as well all know sometimes it's easier to say than do. God Bless you all. I can tell this is a great group of people.

I am 23yrs. old and I have Autoimmune Liver failure and Chronic Kidney Disease stage 3. I go to a Kidney specialist twice a week and I take alot of Diuretics(I guess that's how you spell it). I was scared I have been living with this for 1yr and still I am scared. I am not to the point where I need a kidney transplant yet but I do need a liver transplant. But the main thing to this CKD and Liver disease is you must tell the Dr. of any new changes and build a bond with them, take all your meds and you can respond ask me anything I will tell you about this as much as I know. Surround yourself around positive people take it on day at a time.

Welcome to the forum Survivor!!! Wow you are dealing with a lot of health issues. I'm sorry you are so young and dealing with SO much.

Do you have lupus too??? My s-i-l has autoimmune liver disease and is doing very poorly . . . the domino affect of the high dose steroids and her resulting diabetes, osteoporosis and very thin skin is just killing her. She's also got some lung issues which have not been properly dx'd yet. I hope you'll post a new topic on the Lupus forum and introduce yourself. Your post will get lost in here and members won't get to say hello.

Thanks for your encouragement to Texasrose . . . . I just love this forum for all the helpful members!!

Blessings!

In His Grip

AlwaysRosie "We can't control the waves, but we can learn how to surf!!"

Hi Texas rose, welcome to the forum! you will meet some great people here. I am sorrry you have been having kidney problems. I can't actually say that have them. Several months ago they said I had a Mass in my right kidney. after several tests they relized it was cyst that I have had for a long time. It just sometimes gets bigger and causes pain. They said there was no point in draining it because it would come back so fortunately I I have more pain free days than bad days. I have to take diureetics daily to keep fluids down. I hope your doctors are able to get a handle on this for you and that you wiol get some good info from the people here. It seems you already have. Just please know that you are not alone anymore we share each others others pains and strengths. Please keep posting ann let us get to know you better