Our Mission

My name is Michele and I am the founder of CP Daily Living (http://www.cpdailyliving.com), an educational resource website and Facebook page. CP Daily Living is designed to give families and caregivers dealing with CP a central place for practical information and resources within the context of an emotionally-supportive community.

We created the site because we recognized the need that existed. My husband, Blake, and I are raising our young daughter, “Maya” (that’s her middle name), who has both a mixed form of CP, as well as epilepsy. I stay home coordinating her care, managing our household and running the site. My husband is an adult nephrologist (kidney doctor) who maintains busy hours. Although Blake’s working knowledge of the physical body helps us navigate this often-difficult terrain, he doesn’t try to be our daughter’s doctor. Instead, we work together to make decisions about her care and treatment while respecting and collaborating with the professionals we have chosen to guide us.

CP Daily Living was inspired by our family’s struggle to find resources and information about the daily details of raising a child with cerebral palsy. We were shocked to discover how little information was available to help us figure out how to cope with this incredible challenge. The information we found online was often scattered, inaccurate, and often incomplete. And rather than being hosted by a national foundation or organization, many online sites were (and still are) maintained by attorneys advertising services for malpractice lawsuits. We have come to realize that many parents aren’t aware of this.

We wanted to create a place where parents, caregivers, and relatives could visit when it was convenient for them, and that could offer reliable and detailed information about CP related issues. If we were struggling to figure out how to manage the daily care of our daughter despite Blake’s medical knowledge, we thought other families must be having an even more difficult time coping.

With this in mind we set out to create CP Daily Living so that people no longer have to scour the Internet the way we did; and, on a more personal note, we wanted to share how we navigate our daily challenges and prepare for long-term ones as well. CP Daily Living shares information and experiences about everything from treatment modalities, to negotiating air travel, to thinking through equipment purchases. We also include our experiences from an emotional perspective, such as how I felt when our daughter asked if she would ever learn how to walk.

Since Cerebral Palsy presents in many different ways, our experience may not always apply to everyone’s situation. Despite this, our goal is to help make the journey easier by helping parents navigate the challenges we do share and by letting them know they are not alone. I do this because I feel it is part of my life’s work. I do it because I know the exhaustion, confusion, pain, and feelings of being overwhelmed. I do it because the doors opened to allow me to, and because my heart is in it for the long haul. Through CP Daily Living we hope you will find information, insight and most importantly, support to better equip you and your family for you unique journey.

May your path become more manageable and graceful with each passing day,

Michele

7 comments

sibtain raza says:

May 27, 2013

my name is sibtain raza from Pakistan,i have one child age 8 years,cerebral palsy from birth,my wife leave me due to my child but i manage very hard,very very difficult to survive but one thing is relax me that i done some thing for my child,when i visit your site me received great energy to fight this mission,very useful information i got and hope you both carry on this great work,i am inspire from your great struggle,if you give me some more information,later i send complete data about my child,may be helpful for my child

cp daily living says:

May 28, 2013

You are very brave Sibtain Raza! I will e-mail you privately to the e-mail above a little later this week.

Thank you so much for the great job you are doing. Am Rita from Ghana West-Africa and my sister is raising a year old baby boy with CP. Our country does not have much to help us practise therapy at home. 1 hour 2 times a week does not also accelerate efforts to see my nephew improve better. We would be happy to receive help in the form of a therapy types that can be easily done whiles at home for better results. Blessings.

Charlene de Beer says:

Jun 14, 2016

This is so helful, thank you
You are so right, it becomes very daunting at times, like yesterday, I had a moment where it just dawned on me that how will I potty train my little boy.
So thank you for this
It’s great help

Hello, I am Adnan from India.
I have a son aged 9 months having CP.
I heard about G Therapy in Pune – India.
Will it helpful to my son?
Also could you please provide other information/therapy which help my son?

Greetings from Norway, great site you got here. My partner (28 years old) has Cerebral Palsy. Currently we are fundraising for her getting SDR surgery in The UK. She has been promised to have the surgery as soon we fund 16000 British pounds. It is alot when neither of us can work due to healthcaresystem issues. We are online Evert day on social media Pages and contacting media to get the news out to people.