Wednesday, July 2, 2008

Squeaky Wheel with EI

It helps to be a squeaky wheel when you speak to the Regional Center Reps. They can provide you with more help than you thought your kids were entitled to! I was just making a follow up appointment with our Rep, since Kaylee turns 1 in a couple weeks. We have a review every six months. I was telling him about how far behind Kay was with Gross Motor and he said he would put in for a Physical Therapy assessment and an Occupational Therapy assessment. He even said he would put in for it at the center I asked for, which is K.I.D.S. Therapy. My boys get services at their schools through KIDS, so I thought it would be a great place to go. Plus, it's close to the house and with gas prices the way they are!

I'm happy that we can get the ball rolling on that with out having to wait until August for her Neuro appointment.

2 comments:

I'm SO glad you feel like you're making some progress! My EI case manager is wonderful...and has worked with me to get Trev assessed. It's actually the therapists that I struggle with...they are used to working with severely disabled children so when they see Trev it's like - why does this kid need help?! His first OT actually said that to me! Basically told me that I was a psycho mom! Ugh! In a way it'd be SO much easier if he were just hooked up to an EEG all the time! lol Easier for me I should say!

Anyway...

I know it can be decieving BUT Kay is just more beautiful in each new pic! I just wanna eat her up!

Thanks. It's a struggle sometimes. We go through it every year with Javi and every two they try to cut him off. He is definitely severe enough to still necessitate services. We are not even finished with our round of behavior mod. His sensory needs are so great. Every 5-10 minutes he needs sensory input. I have been considering contacting UCLA to participate in their sensory integration program.

Yes, it's nice that we are making some headway with at least one child. Ethan, thankfully, is doing well right now. I don't think I could handle all of them having issues at the same time, other than the normal everyday stuff.

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Our Family

Ethan, Shanna (Mom), Kaylee, Javi, and Mark (Dad)

About our family

We are a family with three children with special needs. We do things just like any other family, just modified a little. Our life can be crazy at times, sometimes simple tasks are difficult. Love, patience and understanding sees us through each day.

Javi, Age 8, is living with Autism and ADHD

Ethan, Age 3, is living with PDD-NOS

Kaylee, Age 1, is living with Tuberous Sclerosis, IS and Seizures

Click on their site links below to find out more about our children and their stories.