Tuesday, February 9, 2010

Videos And Info On This Past Weekend's Hamilton CCSVI Conference

Well, it appears that this blog is beginning to run the danger of becoming the "all CCSVI, all the time" blog. That's really not my intention, but with new and important CCSVI news coming fast and strong, I feel obligated to keep the Kamikaze faithful updated on the latest and greatest, because CCSVI has the potential to be a Multiple Sclerosis game changer.

I promise, there will be more of the usual Wheelchair Kamikaze photos, videos, and touchy-feely introspective self obsessed Zen laced essays in the coming days and weeks, but until CCSVI is proven one way or the other, I think it's important that I do my part to keep the MS community abreast of the latest news. (Plus, the 12-year-old boy in me really enjoys using words like "abreast" in situations where it would be inappropriate to giggle.)

That said, there was an international meeting of all of the major CCSVI players held this weekend in Hamilton, Ontario (Canada). We should be hearing more about this meeting in the coming days and weeks, and I believe portions of the seminar’s presentations are going to be uploaded to the Internet in video form. In the meantime, we can digest some video and written pieces about it, courtesy of the Canadian news media.

CTV, the Canadian television network that has been on top of the CCSVI story for several months now, today aired an interesting interview with Dr. Zamboni regarding this weekend's seminar and the state of CCSVI research in general (click here for the video). Not only is Dr. Zamboni a medical maverick, but the video clearly shows that he really knows how to rock a scarf...

Also from CTV, this short video overview of CCSVI (click here for video), features Dr. Mark Haacke, a neuroimaging expert who has developed specific MRI protocols designed to identify CCSVI markers. Dr. Haacke also maintains the MS-MRI.com website (click here), which contains a wealth of technical information regarding CCSVI and the imaging techniques used to detect it.

The meeting was also covered in various written accounts, as well. Click here and here for articles on this past weekend's CCSVI seminar.

Dr. Zamboni is scheduled to present his findings to a gathering of neurologists and other medical professionals here in New York on Tuesday morning, February 9. As always, I'll have my ear to the ground (actually, if I had my ear to the ground I would never be able to get up again, so more likely I'll have my ear to the phone), and if anything pertinent comes my way, you'll find it here, on CCSVI Kamikaze...

I would like to remind everyone else that if they have not already done so, to go over there and vote. You only have to click the link above and then click the button that says "Wheelchair Kamikaze". No registration, no pain...

Marc, do you get some kind of prize if you win? Or just bragging rights?

I was diagnosed with Multiple Sclerosis back in 1983. I can hardly walk now and it seems my condition worsens every day. When I first heard about the Liberation procedure and its results from a friend, I thought United States would be the first to conduct the trials. I could never imagine the corruption involved. I ended up applying for this simple procedure in Poland and waiting.. The other options were to get it done in India. After researching the internet extensively, I came across http://www.ccsviclinic.ca/ . They are screening for CCSVI in Fargo, ND and have very affordable packages for the Liberation procedure in India. I called (404)461-9560 and spoke to their nurse administrator Lisa whose priceless support made me realize that we are not alone in the fight against MS. They are screening within the US and Canada, their medical travel package includes flight arrangements and help with the visas, world class accommodation and meals within their hospitals, the liberation procedure, a stent if needed, medications necessary, a site-seeing tour, Pre-and post-procedure supervision, Full medical file including copies of charts, screens, CDs of Venograms, blood work, EKGs, etc. Post Procedure Screenings, follow-up and consultation with surgeons for the next 6 months and so many other provisions Lisa told me about, I can’t recall however you might be able to find out more on their site.. http://ccsviclinic.ca/?page_id=564 . They are providing all of this at just $13000 as compared to the other companies that charge something like $20000 just for the procedure. You may also contact Lisa by emailing her at apply@ccsviclinic.ca or calling her on (404)461-9560. I am getting liberated mid-October and I am so very thankful to everyone at CCSVI Clinic for making this happen!

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Regretfully, due to the high volume of e-mail received and the realities of living with progressive MS, I'll no longer be able to respond to all e-mails sent. I do read each note, and will do my best to answer as many messages as I can.

About Me

I'm Marc, a 53-year-old male, living in New York City with my lovely and wonderful wife Karen. Diagnosed with Primary Progressive Multiple Sclerosis in March of 2003, I now require a wheelchair to get around the city. I like to drive the wheelchair at full speed, thus the moniker "Wheelchair Kamikaze". I've managed to rig a camera to my chair, so I'm able to take videos and still photos from the unique vantage point of a wheelchair, which I intend to post here.
Before getting sick, I was the Director of DVD Production for one of the major international music companies. Yes, I was once a member of the Evil Empire...
Prior to my enlistment in the Evil Empire, I worked as a video producer and editor.
I grew up in New York City, and spent the 1980s in Boston (college and postcollege rock 'n roll craziness). During the 1990s, I lived in South Florida, until I woke up one morning and realized I was living in South Florida, came to my senses, and moved back to New York.
I hope you like my blog...