“The reason I am sharing this story is awareness. I want as many people I know to be aware of this diagnosis in honor of [my son] … in hopes that such a tragedy is decreased, and early detection and diagnosis is obtained so that treatment can begin early and hopefully a better outcome.”

“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups. These wonderful people gave me the hope and strength I needed to beat this disease.” by Jamie Prettner “I was diagnosed with pulmonary

“I'm thankful for the clinical research that has led to my pump and Remodulin and I hope that my story will be one that helps raise awareness for the seriousness and severity of PH.” “My name is Gerry, and I am 29-years-old. My husband is in the Army and we have identical

“So, when you are thinking about all of the things you did for your kids today, think of all of the PH Angel families that would give anything to do anything "normal" for our kids. We have to find a cure.” “Our son, Weston, spent almost 3 years of his life inpatient

“We will not stop fighting for a cure! In the meantime, we will continue cherish every moment we have because, as Callie has taught us, you never know what tomorrow may bring.” by Nikki Linscott "In the summer of 2017, we noticed that our usually lively daughter Callie was seemingly less energetic

"I was diagnosed with pulmonary hypertension in 2016 when I was 22 years old; now I’m 24. It’s been a hard, rough road and it has changed my life for the worst and for the better. I never thought in a million years I would be here dealing with all of this, but I

“I went through a divorce and cancer at the same time in 2008, but I got through that. I had cancer for the second time in January 2012, and I have had pulmonary hypertension (PH) since March 2012. Life sometimes is not easy, but I have learned to not to dwell and just keep

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we stand on the shoulders of great leaders who have come

“If I’d never been diagnosed with PH, I don’t think I would have developed the interest in fundraising that I have… most days I struggle to find anything positive in my PH diagnosis, but if I can convince someone to donate to any charitable cause, to make a difference in any way, I’ve found

“It's always tough to say no to events or be unable to do things because a “bad day” is too hard to overcome. Doing small day to day things to help lessen their frequency is important.” “Burning the candle at both ends can be challenging for patients with pulmonary hypertension. Days when

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas