tag:blogger.com,1999:blog-7517844260180502881.post6383626632806184361..comments2012-09-03T02:35:31.973-07:00Comments on A Little Piece of Aven: Autumn Palmernoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7517844260180502881.post-1910467841770752402012-09-03T02:04:41.115-07:002012-09-03T02:04:41.115-07:00Hi, I saw your post on the cysticfibrosis.com face...Hi, I saw your post on the cysticfibrosis.com facebook page. Your daughter is beautiful. I&#39;m 19 and have Cystic Fibrosis; if you ever have any questions, feel free to add me on Facebook; my name is Mariah Hanley. I would love to answer any questions you have. It seems like you&#39;re doing a wonderful job, and Aven is very lucky to have such a caring mom that&#39;s so on top of everything! Really, though, if you ever have any questions or just want some reassurance, message me. I&#39;d love to talk to you. I&#39;m 19 and was hospitalized for the first time ever last October. My FEV1 lung function is still in the mid to high 90s depending on the month! ryhttps://www.blogger.com/profile/17298390886981858019noreply@blogger.comtag:blogger.com,1999:blog-7517844260180502881.post-52209421594438809472012-09-02T10:42:31.289-07:002012-09-02T10:42:31.289-07:00
Hi Aven!
This is Lily again I was just thinking...<br />Hi Aven!<br /> <br />This is Lily again I was just thinking of you the other day… you see your little brother Noa was a little sick He had some fever and I was worried sick about him. I could not sleep and I kept such a close eye on him… Despite the fact that he was not feeling well, he smiled at me. Like he was telling me that it was ok… I love you and I will be fine. He smiled often and when I saw his smile, it made me calm down. It reminded me of you and your mom. Although my little situation is just 1 millionth of what your family is going through, I wanted to thank you for smiling! You see sweetie, your smiling is what brings relief, joy and a feeling of normalcy. You have no idea how strong and self-less you are… despite the way that you are feeling you always have the strength to smile, it is the way that you communicate. <br /><br />I was reading your mommy’s post today and as always I teared up. I was reading about what your mommy is planning to do… which could mean giving up on teaching or moving. It is so amazing because when I was younger I always thought that love was that warm and fuzzy feeling that you get when you are cuddling, when you are sharing a smile, or when you are sharing a kiss with your sisters! But as I get older I realize that love is about sacrifice. As mothers we would walk through fires for our babies, lift up cars, fight (even if we are not known for fighting) or jump into raging rivers just to know that our babies are safe and well. We will not sleep, we will weep in silence and we will change our whole life… Please do not ever feel bad for this… because you did not ask us to do this… we do this because we love our children and this is honestly the least that we can do… and even then it does not do justice to the immensity of this feeling. I remember watching Brother Bear before I had babies and of course I understood the message and the story… However, I honestly did not know if I could give up my life and turn into a bear. I watched this movie again after I had my babies and I TOTALLY UNDERSTOOD!!! Your mom would become a bear, a spirit, the wind if that brought her closer to you and your sister (the same way that I would if it would bring me closer to my boys!). <br /><br />So Aven, if there is ever a time that you are feeling sad or down… revert to this post. No matter what you are going through, you are never, ever alone! Your family is walking side by side with you! They might never really know what you are going through… but they are living it with you. You have such an amazing family, so selfless… There is a reason why you belong in this family and that is because you share the same spirit, the same heart and the same smile! I have such great respect, love and admiration for your family!<br /> <br />Your friends from afar!<br /> Lily, Noa, Milo and Teemu (that is Noa and Milo’s daddy =D)<br /><br /><br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7517844260180502881.post-50699439328851647842012-09-01T14:15:01.471-07:002012-09-01T14:15:01.471-07:00That last paragraph made me tear up. What a preci...That last paragraph made me tear up. What a precious big sister aven has to look up to! I keep aven in my daily prayers, I used to babysitt for a baby with cf and while I wasn&#39;t in it everyday like you are, i remember the many different meds and tappin her back after every bottle, the capsules in the applesauce ect.....aven is lucky to have a family that loves her so much! She&#39;s a gorgeous baby girl!Hollie leadernoreply@blogger.com