Saturday, April 19, 2008

For those of you keeping up with Noah's progress at Duke University Hospital in North Carolina, I just wanted to let you know that he is out of PICU (Pediatric Intensive Care Unit). Noah's Mom posted that he drank a strawberry milkshake today, sat up in a wheelchair, and laughed at a cartoon. His surgery was on Wednesday of this week!!

On Wednesday night, he CLEARLY told his mom that "this table is hard as a rock". CLEARLY is the important word here. Noah hasn't been able to talk clearly for months due to the constant seizure in his tounge and face. His twitching (seizures) in his face, hand, and arm are gone. They have seen movement on his left side. WONDERFUL NEWS!!

Praise to God and medical science for this miracle boy who, without knowing it, is giving us so much hope, faith, love, and courage to move forward.

God Bless his parents Laura and Brian, and his brother Sam (13) and God Bless Noah. Please watch over him and heal his body quickly!!

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About Me

Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain)
This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008.
This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before.
Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.