Extensive Support for Families

At the Hemophilia Center at Cincinnati Children’s, we provide extensive support for families dealing with issues related to hemophilia.

Preparing for an Emergency

Our commitment to holistic care includes helping patients prepare for emergencies. For example, all patients receive a personalized emergency card stating their type of bleeding disorder, its severity, appropriate treatment, factor dosage, allergies and other specialized medical information. This card is updated at clinic visits to ensure that the information is current. We also explain how to obtain a medical alert tag.

Travel letters can be provided, upon request, for patients who are going out of town. This letter explains the patient’s hemophilia type and treatment and can help facilitate rapid and appropriate therapy in an emergency. In addition, we can provide the names of hospitals nearest a patient’s travel route that offer hemophilia treatment.

Support at Home and at School

The Hemophilia Center at Cincinnati Children’s offers additional support to help patients and families in the home and school setting. These include:

Home visits by a nurse care coordinator, which provide families with an opportunity to ask questions and address concerns

School visits by a nurse care coordinator, who can make an informal presentation about hemophilia for teachers and staff at the child’s school