I just met another Celiac with moderatly bad tremors, noticeable in her head and hands (like Katherine Hepburn's). I'm wondering if there might be a link with celiac disease? No other cause has been found in her case. Any other anecdotes?

I have a slight tremor in my hands that my neurologist is watching, but I think it might be more related to my fibromyalgia than the gluten intolerance, I don't have celiac disease, actually. I really think all of these things are related----the intolerance and the immune system and the tremors. She was hinting at doing another MRI, had one a couple of years ago. I said no. What would it prove anyway. I suffered with migraines for 30 years and I feel that after that kind of pain, damage is done in your head and in later years you just are worn out and things go wrong. Fortunately the migraines don't come much anymore and if they do, I have pills that make them go away.

Since going off gluten two weeks ago, I have developed a tremor in my hands, just slight. Told my doc she has no clue whatsoever.
Tell me some symptoms of fibromyalgia because I have been having:
lightheadedness, tremors, tender spots on my body that feel bruised (all over) but aren't, vision changes, memory/confusion problems.
It's not low blood sugar or diabetes, either.

I have fine tremors. The thyroid DR. said it was from the thyroid
disease I had. They aren't as bad since I had half my thyroid
removed.

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The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller

Interesting....I also have a thyroid problem and take Synthroid for that. Fibromyalgia, for you that asked, is a form of arthritis that is pain that is not in the joints, but in the muscles and ligaments. You have to have tenderness in 18 points of your body for three months to be diagnosed which I was over a year ago, but now it seems to only bother me from my shoulders to my fingertips the most. Like I said, I think all of this is connected....and I hadn't included the thyroid at the time. Often those with fibro also have a thyroid condition. Thanks for including that with the package.

I have a mild (by my definition) head tremor that my husband is scared may be early Parkinson's. I've had it for years and it has never worsened, so I haven't followed up with a neurologist. But your question poses new possibilities. Hmmmmm . . .

Hi, My son (19) was diagnosed with a benign essential hand tremmor about 5 years ago. He is gluten intolerant. He is on the gluten-free diet now (3 months) and I wonder if they have gotten better. I will ask him when I see him (he is never home..LOL)

The root of both the tremors and the fibromyalgia can be celiac. I have the hand tremors, the neck jerking like Parkinsons, and small muscle jerks in my face and hands. It was several years of gradually increasing problems with both problems and finally becoming disabled before the docs caught the celiac in me. The tremors are much better and so is the FMS.

If your tremors are bad enough to be causing a real problem, ask your doc about some of the medications used to control them in MS patients. I take Gabitril and it really helps. Most of the others are not gluten-free. You may also want to avoid soy because the endocrinologist says it can contribute to both the neurological and thyroid problems. He read me the riot act over it.

I have tremors of a different sort. I started having seizures. Well they seemed to have all the actions, tremors, faintness, weakness, confustion, headache post tremor. I have had mri,ct scans,eeg's ekg's, hospitalized. All negative for epilepsy. I was so glad. But still was having spells. I have been off work now since 3-20-04. Doctors don't want me to drive because spells are unpredictable. After having a spell either active or pass out feeling, I usually keep one eye closed. I"m not sure if it's the same eye each time
I do have restless leg syndrome and take mirapex( parkinsons meds). When I sit next to someone, I notice I rock my head or body slightly. I guess I am more aware of it.
I have read the triggers of celiac on this site. extreme emotional stress can trigger the diesease. I have had a very emotional 4 yrs. 1999,2000,2001,2002, I lost my best friend, a close aunt, father in law, and 2002 had a miscarriage 6 wks later lost dad. (cancer). My mom found out she had cancer again after 20yrs just 5 wks ago. She pasted away last week. My mother in law found out she has level 4 cancer and started her chemo and radiation monday. I'm not after pitty. I guess this is more like therapy for me. I didn't mean to carry on and on.
Please say a prayer for us.
God bless
Deb

I'm very sorry for your loss. But I thought this might be evidence, that some people in your family might be celiac, too. Without knowing it. Since there are so many cancer cases.

Hugs, Stef

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StefNext goals:Results for 2011:1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfightingAugust 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)gluten-free since 07/21/2004Shermans Dale, PA

The apparent seizures can also be part of the neurological component of celiac. I have them as well. To look at me when they occur, even the paramedics and ER docs think it is a seizure. The neurologist has done all the tests and they are negative for seizures. The longer I am gluten-free, the fewer of them I have. If I get glutened accidentally, they return.

Keep on your gluten-free diet. Consider also going soy free (the endocrinologist says the latest research may be pointing toward soy as a trigger for neurological problems in celiacs). It will get better. I hope you have as positive a long term experience as I have had.

I have nerve damage to my right eye, because of celiac. Before diagnosis, when I was tired, the right eyelid sunk down and I couldn't open it anymore. Amazingly this changed after going glutenfree. Among other doctors I was sent to some neurologists as well. But all the tests were negative as well. Nobody found anything...

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StefNext goals:Results for 2011:1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfightingAugust 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)gluten-free since 07/21/2004Shermans Dale, PA

Thanks for your support!
I am going to make another appointment with my neuro & gasterologist. I'm starting to have pain in my hands/ feet/ankles/knees. Slight swelling. My rash is spreading farther down my left arm and starting on my thigh. I know with all the stress during the past month, I can't tell if it could be caused by a accidental consumtion of gluten or the stress. All I really want to do is sleep. (Gluten or just wanting mom??)
Debbie

I used to have fainting spells that mimiced siezures. It was vaso vagal (I think that's the correct spelling) syndrome. It was an abnormal adrenalin response that would cause my heart to beat so hard that it became inefficient. This would then cause oxygen deprivation to the brain. Once I went gluten-free it has only happened once in the last 14 months.

Do your siezures happen when you are sitting or lying down?

If they only occur standing up then it may be what I had. Do they occur when you go from sitting/lying to a standing position quickly? The blood shifting in my body was enough to trigger the response. I was checked for this and the doctors explained that siezures can happen anytime any place but the vaso vagal almost never happens unless you are standing up.

I used to suffer from extreme fatigue before going gluten-free now it is hard for people to keep up with me.

Ianm

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If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.