This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.

I was diagnosed with MS 5 years ago. Since my diagnosis i've had noticable circulation problems. My entire left arm goes blue in color, same with my left foot. Cold does not trigger this , physical activity seems to be the trigger. Say i'm on the treadmill trying to get my exercise for the day, my arm would be blue.

Over the last two years in particular i've had pain in my neck below my ears and sometimes behind. If I massage the area thats painfull I get very dizzy. Not to mention everytime I bend down for any length of time more then say one minute and get up, even slowly I almost black out.

With all this new info on ccsvi its seems as though i may have a jugular issue??? Although i'm no dr. But its all seeming to make sense to me know.

I don't turn blue, but my right arm/hand and right leg/foot and lower left leg to some extent get cold easy. Not on the treadmill though, they get warm there. See, I don't get neuros saying circulation problems aren't MS. How can they say that? The brain stem controls circulation. If you have a lesion in the right place in the brain stem, voilà.

Yeah, I also have cold limbs on the right side, not blue-ish, but cold none the less. I also noticed, in my case at least, that my heart rate is above avg., when testing my blood pressure levels, I have high blood pressure. But, I'm simply wondering if the heart rate is associated, perhaps, to vein stenosis somewhere in the body. The heart compensates for lack of circulation of blood...

HEY

"Never argue with stupid people... They bring you down to they're level and beat you with experience"

Now that you mention it, my heart rate is always above average. About 100 beats per min at rest. I also get a extra beat in there from time to time that kind of makes me lose my breath for a split second. I mentioned the extra/skipped beat to my cardiologist(had him for mitoxantrone) and he said some people have it and its nothing to worry about if its only every once in a while. Some days i've had 10 extra beats. But sometimes I have no extra beats for weeks.

But last time i've seen the cardiologist he was trying to check my pulse in my neck. He tried one side, then i've seen him stop and look really close to my neck and then try the other side. He never did mention anything about why he did that. But that was about 4 months ago.

nicko, have you ever had an ultra sound done of your heart - what you're describing sounds like a mitral valve prolapse (which I have) and is a very common condition, usually not serious. It does cause rapid heart rate, irregular heart beat, a slight reflux of blood, and sometimes a little chest pain. Might be good to have a cardio vascular person check that out.

Anyway, I have the dizziness 24/7, my first presenting symptom; when I massage the back of my neck, my whole head just feels "weird"; I also get dizzier when bending over and straightening back up, and I have pain in both sides of my neck that comes and goes but is right where the jugulars are. My neuro has always shrugged all this off.

I've had numerous wall motion tests done. Where they inject something that sticks to your blood. They can see how the blood flows through the heart. All of them were normal, i'm assuming those would pick up the mitral valve prolapse you describe?? I've seen the video after the test, you just see the blood flow through the heart. Not the actual heart itself. But where my extra beat is only random and not all the time, it might not show up during the half hour test.

Wow it seems as the dizziness from bending over and getting up is very common. Sometimes when I get up a little too fast I have to sit back down so I don't black out.

Who is online

This site does not offer, or claim to offer, medical, legal, or professional advice.
All treatment decisions should always be made with the full knowledge of your physicians.
This is MS does not create, endorse, or republish any content.
All postings are the responsibility of the poster. All logos and trademarks in this site are property of their respective owners. All users must respect our rules for intellectual property rights.