Tuesday, July 24, 2012

Who is This Small Statured Subject, Plain Jane?

When I was a child people always
told me that I was an, “inspiration” to them. My response was usually a
confused smile and a, “thank you.” I just thought it was a rather silly thing
for a grown-up to say to me. In my
mind, I was just a kid who liked to color and play with Legos. As puzzling as it was as I experienced
life and moved through different circles, I learned how I was an inspiration to
others. I had work to do though
and lessons to be learned.

I needed to explore what
my passion was, what inspired me, and how I could share it with the people in
my world along with the people of this world to make an impact. This film illustrates me in real
form, surrounded by my interests, my actions, the actors of my world and how we
direct our stories…

As a teenager I got
involved in extracurricular activities in school and Church. This allowed for
lots of interaction with people who were not accustom to seeing a teenager with
a physical disability who was as socially active as me. Again, people would approach me to let
me know that I was an “inspiration” to them. I didn’t consider any of my activities to be extraordinary,
so I assumed that I just impressed them by my fashionably tall 80’s hair and
snazzy fashion sense.

In my early adulthood I
attended college, became politically active in regard to the rights of people
with disabilities, and overcame huge personal struggles with abuse, alcoholism
and learning to live independently.
Family, friends, and total strangers still commented to the fact that I “inspired”
them. I did not understand…how
were the things that were tearing at me somehow “inspiration” to others?

When I reached my 30’s, I
experienced a shift in my own consciousness and self-awareness. I had one realization after another. I’m not certain what caused this shift
but I’m sure being physically, emotionally, and spiritually healthy had
something to do with it.

It wasn’t my fantastic
coloring skills that people found inspiring. It was the fact that when I had one or two broken arms, I
would just naturally color with my feet.
It wasn’t exactly my keen 80’s fashion sense that inspired people. It was the way that I always carried
myself like a rock star with inner confidence, which inspired people to
reconcile with their own body image insecurities. The observations of me struggling to overcome abuse,
alcoholism, and independence made it clear what capabilities we all have and
the control we all have over our life circumstances. Regardless the limitation I’m perceived to have; I’ve been
able to turn roadblocks into speed bumps and continuously move forward toward a
more peaceful and sustainable life.

This is the stuff people
find inspiring!

Then I asked myself…”I
wonder how many lives I could have a positive impact on if I actually put forth
a little effort?” Thus far, any
inspiration I have brought others has just been a by-product of me living my
life. I began to explore what really
interested me, how that would impact my world, and how it would in turn benefit
people in this world. I took my
stance on politics, laws, environmental issues, health, modern medicine, and
current community events. By
defining my beliefs, building a foundation through education, standing up for
what I see as important issues of today, and speaking what my plans are to help
improve the states of these issues, I can just sit back and do what I do
best…inspire people to do the same.

The biggest challenge for
me was figuring out how to reach lots of people. My efforts are now focused on not only reaching people
through my daily living, but to capture them, get them involved in their own
lives, and show them how to act on their life to better themselves and our
world. This was a lot harder than
I anticipated. I needed an audience outside my inner circle of influence. My goal was defined and I had to find a
way to reach new and greater points of impact.

So, I did some research
and found Documentarian Tom Trainer.
It would be much easier to give everyone an opportunity to play voyeur
while I just kept living my life.
Imagine the opportunity to inspire within the median of film! I
basically pitched the idea to him like this, “I’m just
going to do what I normally do and I want you to film it. When we have enough
interesting footage, we’ll turn it into a movie. Ok?” He agreed.

This project turned out
better than either of us could have imagined five years ago. Being the most challenging and most
rewarding endeavor that I have ever willingly taken on, here is my life and
here are my inspirations.

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In the news!

SHOCKUMENTARY?

This film is a “shockumentary” in that common notions about disabled people are turned upside down and backwards. Part interview, part music video, part animation, and part reenactment, this film explores new territory in the realm of human experience; a triumph of the will as Jane overcomes obstacles and destroys popular myths.

Jane was born with Osteogenesis Imperfecta, a condition which is manifested by extremely brittle bones. At birth, Jane had twenty-six broken bones and was not expected to live 3 hours. By the time she was in high school, she had broken 200 bones.

With a large dose of dark humor, this independent film is full of social taboos and cult-classic potential. It will make you laugh more than it will make you cry but most importantly, it will make you think. By example, Jane teaches viewers that acceptance of self and of others can pave the road to a fantastically outrageous reality that is full of adventure!