Emily

Friday, February 19, 2010

Well, the therapy evaluations have started....for school as well as the next few months before she goes into school. Emily and I went to the school and met with the Speech Therapist that will be working with her when she goes to school in August...LOVE HER! :) She did a LLOOONNNGGG evaluation on her, asking all sorts of questions and getting Emily to do a few things, and we're still not done. We will probably have to meet once more to get the rest of it done. It's coming down to the Early Intervention deadline, and I'm getting slightly worried that they are not going to make it. It's no skin off my nose because she will not be going to school until the Fall, but they have a very strict deadline that is about 2 1/2 weeks away, when she turns 3. In that 2 1/2 weeks, we have to finish the evals and have a meeting with the therapist, the Sp.Ed director, and the Early Intervention director, on top of them having to have ALL their paperwork in. It seems like to me that it's not enough time, especially considering there's only two days a week that I will be able to meet with them...hmm...Anyways, she will also be having a Speech evaluation at the clinic that she has been getting her PT and OT from next Friday. We're doing this so there will not be any lapse in service when she turns 3 and cannot get therapy through EI anymore. I'm fairly excited about this one. These therapists at this clinic really have their priorities straight, and I love them all to death. I am really happy that Emily is going to get Speech therapy from there for the next few months. Well, I hope everyone has a great weekend! I'm planning a shopping trip with my oldest tomorrow. Growing growing growing!

Thursday, February 11, 2010

Sometimes this is what I feel like...lol! Just constantly going uphill, move back down a little, and then just keep chugging upward. Eventually, I know we will get to the top, but it sure is tiring. Emily is continuing (at her own pace) to progress. She's had another sinus infection this week (the second in the last two months), so we didn't have speech therapy yesterday. The last week, however, she did good. She continued to use her signs and is starting to make some new sounds. She did something big tonight, though, which is the big reason I am writing this blog. She ate all of her mashed potatoes with a spoon! Yey! This is such a big step for her. She has always just been contented to use her hands, and when Emily is content doing something, it is sooo hard to get her to do something different. I loved it! She just amazes me all the time. I love her so much, and sometimes, I have days that I just curl up on the couch or in the bed when I get free time, and I just cry because that's all I know to do. Some days, everything just hurts. But, I always think about how close we came to losing her and I thank God for letting us keep her, and I know that I would take the hurt over and over and over again to keep her here with me where I can see that sweet smile every day.

We're hoping to start a feeding class that her Speech Therapist recommended sometime soon. It's supposed to deal with some sensory issues, and she has developed some pretty severe ones, which is why it's a big deal that she ate with a spoon tonight. I'm pretty excited about it. It's a 12 week program that deals with eating, drinking, etc.

I am also fixing to start fundraising for TEAM EMILY for the Diabetes Walk in May. It's going to be closer to us this go around than it was back in November. I'm super excited about it. I'm hoping for a bigger team and more money to give the Diabetes Foundation of MS. It's a lot of work, but it's fun and so worth it when I think about possibly having a cure for Type 1 Diabetes someday...oh what a day that would be! :)

Hope everyone has a great weekend! Enjoy the snow if you are getting any! We might be...I'm ready for Spring myself :)

This is a blog about my sweet little Emily. At four months she was diagnosed with Downs Syndrome, and seven months later, we almost lost her to Type 1 Diabetes. I am so thankful for every day that I have her here with me. This blog will contain some of the joys and hardships that we face on a daily basis.