Create possibilities with hidden differencesCreative ideas to build support, understanding, change and compassion to provide hope instead of fear for persons living with the challenges of fetal alcohol spectrum disorder (FASD).

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Thursday, August 16, 2012

#24 Days To FASDay - Listen to persons with FASD

Listen to persons who have fetal alcohol - they have insight we can all use.

This is John Kellerman's speech given on 09.09.09
Great job John!

My name is John Kellerman.I’m the drummer in the band at the 9:30 service at St. Paul’s church. I love playing the drums. That is one thing that is easy for me.

But many things are difficult for me, because I have Fetal Alcohol Syndrome.I have a hard time making friends. I don’t always remember social rules and I can be inappropriate sometimes, especially when my mom is not around.

The hard thing about having FAS is that sometimes I act like a little kid, sometimes I act like a teenager, and sometimes I act like an adult. The really hard part is that I can never control or predict what level I will be at any time.

That’s kind of scary for me, because I know what the rules are, I know I can get into trouble, but I break the rules anyway, like I’m on a train with no engineer and the brakes don’t work.

I depend on other people to help me stay on the right track. My mom helps me by making sure I am safe all the time, and by teaching me what is important.

She teaches me to be respectful, to ask for help, and to communicate my needs.She teaches me about the dangers of alcohol. She says we can celebrate without drinking, and we can have fun without alcohol. And that nobody ever died from not drinking!

‎BETTER ENDINGS NEW BEGINNINGS GIFT TO COMMUNITY

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Thank you John. I enjoy your gentle presentation and honesty.My daughter struggles with the same difficulties, but with support I hope she will make the most of adulthood like you.I would like to share my video blog about how to support children with special needs like FAS in the hope that parents can feel less isolated.Please have a look:http://parentingaspecialneedschild.com/blog/