Cancer Survivors Network - Comments for "Major ringing in my ears"https://csn.cancer.org/node/248230
Comments for "Major ringing in my ears"en-csnTinnitushttps://csn.cancer.org/comment/1292200#comment-1292200
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<p><em>In reply to <a href="https://csn.cancer.org/node/248230">Major ringing in my ears</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>More than likely you are having some reactions to the Cisplatin Jim, make sure to communicate with your MD's so they can come up with a plan for you.</p>
<p>More than likely this early in your treatment, it's the chemo causing your taste loss. Normally this would be pretty short lived and return within a week or so.</p>
<p>Unfortunately with the rads, your taste and saliva are going to go south, very far south for several months.</p>
<p><b>Welcome Liviu</b>, I too had Cisplatin, Taxotere and 5FU in three week cycles (nine weeks), then seven concurrent weeks of weekly Carboplatin and 35 daily rads.</p>
<p>During the cycles of chemo, Emend worked wonders for naseau, I never had it...at all.</p>
<p>It took a good several months for the majority of taste and saliva to return..., nearly two years for it to completely return...I do have some dry mouth at night during sleep....</p>
<p>Best,<br />
John</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/248230%23comment-form">Log in</a> or <a href="/user/register?destination=node/248230%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 14 Oct 2012 13:08:23 +0000Skiffin16comment 1292200 at https://csn.cancer.orgRinginghttps://csn.cancer.org/comment/1292269#comment-1292269
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<p><em>In reply to <a href="https://csn.cancer.org/comment/1292219#comment-1292219">I had the exact same Dx as Corleone.....</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I had Cisplatin and finished tx mid-May. Have mild ringing in one ear every morning for about an hour but then it goes away for the remainder of the day. Tolerable. Hope yours improves.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/248230%23comment-form">Log in</a> or <a href="/user/register?destination=node/248230%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 13 Oct 2012 13:12:29 +0000hwtcomment 1292269 at https://csn.cancer.orgI had the exact same Dx as Corleone.....https://csn.cancer.org/comment/1292219#comment-1292219
<a id="comment-1292219"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/248230">Major ringing in my ears</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>...but had had ringing in my ears starting about a month before I was Dx'd. It's never gone away, but I haven't noticed any hearing loss. My Onc asked me about my hearing at every appointment with him...so they do want to hear it, if you are suffering loss.</p>
<p>I had Cisplatin every 3 weeeks for 3 treatments, then Cisplatin with a 5 FU fanny pack every 4 weeks for three treatments.</p>
<p>I think I've gotten used to the ringing, because I had to stop and listen to see if it's still there....yup, it is :).</p>
<p>I too, lost all my taste by the end of the second week after the rads and chemo began...I have a lot of my taste back now, but no saliva to speak of to go with it. I finished rads on June 15th, and finished chemo Aug. 28th...</p>
<p>p</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/248230%23comment-form">Log in</a> or <a href="/user/register?destination=node/248230%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 13 Oct 2012 04:51:13 +0000phrannie51comment 1292219 at https://csn.cancer.orgTell your doc, they may wanthttps://csn.cancer.org/comment/1292212#comment-1292212
<a id="comment-1292212"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/248230">Major ringing in my ears</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Tell your doc, they may want to switch you to carboplatin. My husband was switched to that from cisplatin because the doc was afraid of permanent hearing loss. He had major ringing in his ears. </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/248230%23comment-form">Log in</a> or <a href="/user/register?destination=node/248230%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 13 Oct 2012 04:12:25 +0000amy_h414comment 1292212 at https://csn.cancer.orgHearing losshttps://csn.cancer.org/comment/1292194#comment-1292194
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<p><em>In reply to <a href="https://csn.cancer.org/node/248230">Major ringing in my ears</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Jim,</p>
<p>I finished the radiation treatment (70 Gys, 7 weeks) for NPC (nasopharyngeal carcinoma stage III) 6 weeks ago. I had the cisplatin concurrent with radiation, on days 3 (2 days late, should have been day 1) and 24. The third cisplatin session didn’t occur, because of significant hearing loss (the high frequency sounds gone, the medium affected, to the point that I have trouble understanding even the speaking). Right now I am on chemo treatment, with carboplatin (instead of cisplatin, because it has lower ototoxicity) and 5 FU (1 done, 2 more to go, monthly treatment, 1 week on, 3 weeks off).<br />
So you might have to do an audiogram (hearing test) after each cisplatin treatment. If the loss is significant, you might have to switch on carboplatin.<br />
I also noticed the lymph node shrinkage, the second day after cisplatin.<br />
The tinnitus (that noise in the ears, I would describe it more like the cicada (insect) sound) will get better, and maybe even the hearing might get partially back (mine didn’t). You can’t do anything about that, some inconclusive studies show that vitamin E might confer some protection.<br />
For nausea, try Emend. It’s probably the best, but it’s expensive (if not covered by the insurance; not sure about that, I live in ON, Canada, where it’s partially covered).<br />
I lost the taste by week 3 of radiation. Until now it hasn’t come back yet, except for the taste for salt (recovered partially). Still no saliva, almost completely dry.<br />
Good luck,</p>
<p>Liviu</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/248230%23comment-form">Log in</a> or <a href="/user/register?destination=node/248230%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 13 Oct 2012 03:09:50 +0000corleonecomment 1292194 at https://csn.cancer.org