Welcome to the Global Dystonia Registry! The goal of the Global Dystonia Registry is to support future dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia. Although the focal dystonias have many different manifestations, most experts believe they share a common pathogenesis or mechanism that causes the disorder. The common causes may be a similar gene defect, similar lifetime experiences, or both. Collecting information from different patient populations may help us identify the common features that they may share. This Registry compliments the current scope of research for the Dystonia Coalition, a National Institutes of Health supported clinical research effort.

Your responses will help us better understand the dystonia experience and help guide future directions in research. Please know your responses will remain confidential. Your participation is completely voluntary and the parameters of each study will be defined for you should you decide to be involved. We hope you will register today!

Newsflash

Understanding Dystonia
Dystonia is a neurological movement disorder that causes muscles to contract and spasm involuntarily.

Research Studies through the Dystonia Coalition
The Dystonia Coalition is a cooperative project between medical researchers and patient advocacy groups. Its mission is to advance the pace of clinical and translational research in the dystonias to find better treatments and a cure.