thinking about everyone

Joemory21

Posts: 40
Joined: Feb 2013

May 24, 2013 - 1:58 am

hi all

i just wanted to check in and say the last 2 rounds have kicked my butt with low white blood counts and having to give myself shots. most of the last week i was very tired but i took my dads camper to the lake that is near my house. two nights of camp fires and fishing when i could or just i great view out the window was great. on to more good news only 3 rounds to go waiting on my pet scan but the few nodes you could feel are gone so i have high hopes most of mine you could not feel anyway but i will know soon. how are you all doing? carrie sue nathan jim bill max and everyone thats in my cancer family you all all great and it chemo brains fault if i forgot things.

Hi Jonathan :). I'm doing pretty well -been fighting a sinus thing but managing. Yay! Only 3 more to go! I'd say that since the nodes you could feel have shrunk, that is a very good sign. Please keep us updated. I envy you being on/near a lake - that sounds so nice. I love mountains and lakes. Sue and her husband fish fairly often I think

So nice of you to check in and see how everyone is doing! I am dealing with a new outbreak of shingles...this time on the left side of my head near the temple. I got to the E.R immediately when the rash popped out, so hopefully getting on Acyclofir right away will nip this in the bud. The headache was off the hook painful for the first 3 days, but is now under control and on the mend. I swear...if it isn't one thing it's another! I'm so happy you are down to only 3 treatments left. Keep in mind, the last few rounds seem to really knock us down with the fatigue. All we can do is rest and go with it, and listen to what our bodies are telling us. Escaping to the lake sounds like the perfect way to to rest between rounds. Keep in touch and let us know the results of your PET scan. Keeping you in my prayers with positive thoughts! Sue

So sorry to hear those dastardly shingles got you again...I take acyclovair everyday to make certain that I won't have an outbreak ever again. My oncologist prescribed them to me at the beginning of my treatments. Thinking of you daily!!

Thanks for asking and the concern. I'm doing much better. The patch on my forehead is drying up and didn't spread, so that is good. The darn headache however has been a challenge keeping ahead of, but so far the pain meds have done the trick. Just want to get better and work on getting my energy back up....hard to feel energetic while having to take pain meds. Ugh! I'll be on meds for another 5 days and hopefully by then be done with these darn things. Having a compromised immune system sure is a bummer...makes me wonder what else will pop up. Hope you two are having a good holiday weekend. We've had a bunch of rain with more on the way. Weird weather for the end of May. Love...Sue

I am so sorry you are having trouble with shingles. Can you take the shot? (I can't). I want my energy back too!! I am about over this Lymphoma business. Unfortunately, it doesn't seem to be over me yet. I keep reminding myself of the things I can do that I couldn't just 6 months ago. I cleaned my stove and oven today. Yuck, not fun, but at least I could do it.

Sorry to hear you have shingles. I had the shingles vaccine about a month before my intense Rituxan treatment began and so far no shingles. Apparently its a common side effect. My main Rituxan side effects have been fingernail infection, swollen knees and shoulders and constipation. Am having my knee drained to test the fluid for lymphoma. Oh yeah - I have a strong very unpleasant bitter taste in my mouth after I eat or drink anything. Have you seen that?

So good to hear from you and that the nodes are shrinking. Halfway done is awesome, I will be at that status after this coming thursday...Rest up, I am sure there is a big party in your near future I am glad you were able to get out and enjoy some of mother nature's splendor, it is re-charging just to be able to do stuff like that. Keep the faith buddy, it's almost over!!!

I sure know about the low blood counts after chemo--no fun at all! Camping at the lake sounds like a wonderful way to relax and recover--Just napping near the water even when you don't feel like getting outdoors. I hope you have better luck with your last 3 rounds (only 3!!) of chemo and that your PET scan shows the results you are hoping for.

For chemo brain, my oncologist said vitamin E could help. You may want to ask your doc. Also, it is recommended that you wait until chemo is completed before beginning supplements.

Your thoughtfulness is very much appreciated. We are glad you are on your way with your treatments etc. A nice way to deal with the side effects, (all those negative ions can't hurt). Bill is scheduled for a CT Scan in June and we aren't expecting any surprises. Continued remission is our motto. We will be taking our 5th wheel up to a trout creek in No.CA the end of June. They stock it 3 times/wk from a nearby hatchery and you can practically walk across it on fish! I know, I know, it's not really fishing, but what can I say? I'm a girl. Thinking of you and hoping you get stronger everyday, Bill & Becky

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