The experience of living with cystic fibrosis is markedly different today than it was decades ago. Thanks to the discovery of the CF gene, the availability of effective drug therapies and advances in technology, the 30,000 Americans who deal with the disease day in and day out are living longer and fuller lives. In a word, they are thriving.

“If I could give anyone affected by cystic fibrosis advice, it would be this: It is not the end of the world. The disease is manageable and there are breakthroughs being made every day. Keep your hope and always remember to run, run, run!”