Get Involved

There are many different ways people can get involved and support the Dandy-Walker Community. Your support enables us to continue to grow and expand our capabilities, please read our Annual Report for more information on what we do and what our plans for the future are.

Your support comes in many different forms, some of the most common ways people get involved are:

Get your State involved. We’ve launched our 50 State Inititive with the goal of having every State in the United States declaring the month of May Dandy-Walker and Hydrocephalus Awareness month. 2009 was very successful but lets make 2010 even better! Download this template letter asking your governor to declare the month of May as Dandy-Walker and Hydrocephalus Awareness Month to contact us through our 50 State Initiative page!

Plan a Fundraiser-This can be anything from a small Bake Sale or Car Wash to a large Walk/Run or other community event. We have created a helpful guide for Walk/Runs that can be found here, but we’re more than happy to help in anyway we’re able with any type of Fundraiser you’d like to do. Please contact Terri or Eric with questions or for additional information. Download a copy of our IRS Determination Letter for any venues that may need it for the event.

Consider making a financial donation. The Dandy-Walker Alliance is run completely by volunteers and the majority of our revenue is from private donations. As we move towards entering the research arena your continued support is crucial. We have ensured that our finances are completely transparent and have recently earned Guidestars Exhange Partner status. Guidestar is a national organization for Non-profits and publishes, via the Guidestar website, free information on any NFP that is registered with them.