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My goddaughter Hannah who has CCHS is growing up well. She's 22 months old now.

She has new photos and videos in her blog. Super cute! She can stand and walk on her own now. You have to watch the videos... she dances too!

Below is the description/caption from Hannah's new photos:

It's been a while since I've posted photos of Hannah. Quite has happened since the time I blogged about Hannah's new vent.

She's had feeding issues for a couple of months and lost a considerable amount of weight because of it (as you can see in some of her photos below). We took her to a Pediatrician-Gastro Internist and told us to give her probiotics (in powder form) to address her digestion/indigestion problem (although I suggested to the doctor that Hannah's new milk formula may be causing whatever problem there was). A day after giving Hannah the probiotic powder (May 5, 2009), she became irritable and suddenly went into seizure. Joan and I had to rush her to the hospital and was admitted to the ICU to undergo tests on her brain and her heart. By God's grace, all her tests showed normal results. We switched her back to her old milk formula and stopped giving her the probiotics. As it turns out, Hannah's new milk formula was the culprit for her feeding issues and the probiotics had an adverse effect on her which triggered her seizure. She's now quickly gaining the weight she lost and also back to her very happy and giggly self.

You can check out Hannah's photos HERE and the videos HERE (first two videos are the latest).