Friday, April 23, 2010

Not much

going around here except the nice weather. I thought it was suppose to rain all week, but I guess they were wrong. Unless it's been raining at night and I haven't noticed!?

I've been working a LOT lately... and by a lot I mean like 45 hours per week. Which is good and bad. The money is good, but it wears on me and I'm tired a lot. I try to sneak naps in when I can. Here lately I've been laying out in the afternoons for about 45 mins or so. That gives me a little rest!

We will be going on family vacation to Destin in June. I CANNOT wait to go! I LOVE going to the beach. I wish I could live there!

Here are a couple pics of the girls at Easter. Blair was sick sick on Easter, but we still managed to have a little Easter egg hunt for them at my aunt's house. Britt's Mom does a HUGE one at their house, but we missed it. With Blair being sick and I had to work the night before it just didn't work out this year!

Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!