“It is vital that more people are aware of the needs of people with MND so those living with this devastating disease can maximise their quality of life and die with dignity.

“In life no one has assurance of tomorrow and with no cure of MND it’s important we do all we can to give someone the best quality of life possible up until the end.”

Chris James, Director of External Affairs for the MND Association, said: “The importance of the MND Charter is undeniable. We want everyone to be clear that access to the right care, in the right place, at the right time, as set out in our Charter, can transform lives.”

For further information please visit the MND Association’s Charter page