Wednesday, November 30, 2011

A few questions for Grey

Well Leigh and I had this great idea that we'd set up the camera this past holiday weekend and ask greyson what he was thankful for. Naturally, he wasn't interested in accommodating us for our video...However we did get some footage of him answering some random questions, drumming, and singing his favorite song, which happens to be called "1,2,3,4,5,6,7,8,9,10 song"

heres the video.

Heres a few images from our Thanksgiving Day.

Just relaxing after a big meal...and some how Grey ended up with 3 "ories" (eeyores)

hehe!! I love it! Did he seriously say 45 as his favorite number the second go around?! Crack up!! What a smart and silly little monkey. :) And watch those first 2 Ories...I swear they were making out that one time, and now there's suddenly a 3rd Orie in the mix...who looks suspiciously like them...hmmm;)

I stumbled upon your blog, and reading a few of the entries has given me a very meaningful inside perspective about having a child affected by spina bifida. The name of your blog is too cute! I am inspired by your courage and touched by the pictures of your family that I had to reach out. My name is Courtney Beyer, and I am the new Study Coordinator at VitaPath Genetics. Earlier this year, we successfully completed the first phase of our landmark study looking at the genetic factors contributing to spina bifida. In conjunction with our academic collaborators at Children’s Hospital Oakland Research Institute (CHORI), Stanford, UC Berkeley and UCSF, we recruited over 1,000 women and their child affected by spina bifida to participate.

Our first phase produced promising results but, we believe that it is appropriate for us to replicate this study in a second, independent group of mothers. We are beginning our second study in early January and are reaching out to more mothers to participate. In order to reach as many women as possible, I would very much appreciate if you could include news about the study in your blog. I also have banners and buttons if you would like to post something on your site. In addition it would be great to connect with you via facebook (search SB Genetics) and twitter @sbgenetics.

I would like to get in contact with you to share more information and answer any questions that you may have. Please email me at CBeyer@vpgenetics.com and visit www.sbgenetics.org. This website gives an in depth explanation of the study as well as a link if you are interested in enrolling. Thank you for taking the time to read my note and I am greatly looking forward to being in contact.

leigh, if you have a second, would you mind emailing me? we are adopting a little boy, soon to be 4, with sb. i'd love to chat with you if you wouldn't mind encouraging a newbie sb mom! erikapfinn77 athotmail dotcom

About Me

We are Andy and Leigh Gibbs and we are loving being parents to our little Greyson! Greyson was born on Feb. 12, 2009 with spina bifida. He spent 11 days in the NICU and is finally home where he belongs!