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Thursday, June 01, 2017

Setting aside the car accident, I want to return to an aspect of my daily experience. We're not the same. Most of you have no experience living with cerebral palsy. You don't think about moving an arm or leg; you just do it. If you had major orthopedic surgery in your youth, it'd be a story of an injury, not a rite of passage. So many things are different.

And yet.

The one thing we all want is to feel loved, understood, and valued as people. I believe we all share a common fear that we are alone, that no one understands, that no one really cares. If you really want to help me, don't fret the physical things; let me know that the lurking fear every human knows, at least for these moments, isn't true or real.

There are people who lay it on pretty thick, in terms of "demythologizing," in a sense, the life of disability. To paraphrase one speaker, I don't need an award for living.

And yet.

I must learn to live with the curious tension of desiring the ordinary, but living with something else. We all must negotiate together that appropriate level of sadness and awareness of defect, and the charge to live well. I think the disagreement I have with some disability advocacy is that, in fact, there is something wrong. Let's not beat up on ABs (let the reader understand) too much. Missing or non-functioning limbs (or whatever else) is not the way it's supposed to be.

Being a Christian clarifies much of this tension. While groaning in expectation for all to be revealed (Romans 8) we are simultaneously loved by God. It's God who has declared the facts of the resurrection of the body, and the new creation. I don't cry in my Coke at the unfairness of it all, true. But it would be absurd to look at His restoration on that day and say, "No thanks, I'm good."

The great American philosopher John Legend once said, "We're just ordinary people." Partly true. A cross is an opportunity to love extraordinarily inside an ordinary life. The saints are those who took the opportunity and ran with it.

Tuesday, May 30, 2017

I think Dr. Haidt is really on to something. And that's with the evolution assumptions notwithstanding. I have not always been reasonable. I would like to be. Civility is not an end in itself, but it's a virtue that allows us the intellectual and relational space to hear each other.

I don't ever want to hate "The Left" as much as others hate "The Right". Let me know if you think the state of our political discourse is radically better than I think it is.

What can we do ourselves to make it better?

These considerations don't change fundamental moral values, and given the fact that politics eventually involves power, there are limits to the amity that can be achieved. But I would be willing to bet that most of us are exhausted, and hoping there's a better way.

If we Christians truly believe that all people are made in the image of God, they cannot in the end be "the other." How might that change our political engagement?

Sunday, May 28, 2017

I have begun with the first four words of our most common Catholic meal prayer to let you know that I'm eating! Still liquids for a time, but I'm on my way to making this feeding tube superfluous!

Most of you who know me know that my tastes are simple. But Campbell's vegetable beef soup puréed is way better than you'd think. [Mom added some beef broth to thicken it, yeah?--ed.] Yep.

I'm drinking Gatorade right now. Technically, my eating status hasn't changed, but the speech therapist thinks it's safe, so I'm doing it. I have to pass what's called a "barium swallow test"--it's as radioactive and disgusting as it sounds--before the official change.

We give thanks, Almighty God, for these and all Thy gifts, Thou who lives and reigns, one God, forever and ever, Amen.