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Posts tagged with: Doctor

Good news -- GREAT news! Gwendolyn's appointment today went really well. All things considered, Dr. Yuan is actually really pleased with how Gwendolyn looks and sounds. Her labs came back excellent. Her x-ray was fabulous. And overall she is in tip-top shape. WHEW! We talked to Dr. Yuan for hours...

We are worried. We have been for a month now, but we keep hoping we will see improvement. We keep hoping we aren't seeing what we are seeing. Gwendolyn just isn't herself. She isn't sick. She wants to do and go and see, but her energy is low. She is not coming off bipap for very long. She is...

So Gwendolyn is fighting something. We hesitate to say she is sick because, well, she's smiling and insisting on doing things and going places, but she's just not quite right. No fever. No major lethargy (although a little more tired than usual). But she's not fully herself either. For several...

Gwendolyn is a champ! She is transitioning to the Trilogy with ease and, thanks to the help of so many people, the last few days have been positive ones. The reality that her settings are now so high that she is even more vulnerable weighs heavily on us, but the kindness of others helps to soften...

We'd be lying if we said everything is A-ok in the Strong household. It is not. And while we know we are in a very precarious situation with Gwendolyn, we are hopeful. We have a plan. Team Gwendolyn is in full force!

Gwendolyn had another episode last week. She didn't completely stop breathing, but...

We are a little concerned about Gwendolyn. We have been watching her closely for several weeks. Nothing major is happening, but whenever we notice any subtle changes our worry-meter goes off. She is not tolerating being off bipap for long, has been waking up crying in the night, and has had some...

We are H1N1 vaccinated! We have been waiting for the shot form of the vaccine to come into our county and started to get nervous as more time passed (and as H1N1 deaths begin in our local hospital). Well, today it arrived and Gwendolyn's pediatrician called us bright and early to come and get it....

We met with a local neurologist this afternoon to discuss the EEG and the episodes we are seeing. It was inconclusive at this time, but there is concern that what we are seeing is indeed a seizure disorder. We were with the doctor for hours today and went over everything from possible medicines to...

We've been noticing Gwendolyn having random periods (semi-regularly and mostly off bi-pap) where she is blankly staring into the distance and is more or less unresponsive for several seconds. Her pupils dilate and/or one or both eyes will travel or float during the episode. It's definitely alarmed...

It has been a busy few days. We are home from Stanford now and are continuing to try to figure out what is going on with Gwendolyn. We are still a bit worried, but are relieved to be tackling the issues.

She is doing fine on the antibiotic, but we are watching her closely to make sure her...

We are on our way to Lucille Packard Children's Hospital (aka Stanford) to check in with Gwendolyn's pulmonary doc, Dr. Yuan. We are relieved to be going up to see her and are hopeful Gwendolyn's struggles can be eased by increasing the BiPap settings. We wholeheartedly trust Dr. Yuan and her...

Thank you to everyone for all of your thoughts and concerns. Gwendolyn's pediatrician, Dr. David Abbott, saw her on very short notice this afternoon -- yes, on a Saturday (he's amazing)! He didn't see or hear or feel anything obvious and that was a relief. It could be a multitude of factors...

We are almost home after a very productive meeting with Dr. Yuan at Stanford. Have we said how much we love her? She is honest with us about everything, but not clinical and always reminds us that Gwendolyn is her own person and not a statistic. She thinks Gwendolyn looks really great and is...

We have a new member of the family. That's right, Big Bird has officially joined the gang. It didn't take long (all of 5 seconds) for Gwendolyn to fully accept her new pal. She insisted on napping with him, taking him on her walk, and complained at bedtime until Daddy wisely acquiesced and...

After speaking with Gwendolyn's pulmonologist and making a visit to see her pediatrician, Dr. Abbott, today, we aren't as concerned as we were earlier. While the change in Gwendolyn's oxygen saturation is strange, given that she has never shown any signs of distress or discomfort or major signs of...

Tonight, we're off to Stanford to meet with Team Gwendolyn all day tomorrow. It's a pretty tiring trip, five hours each way, but we've found that getting up and back in the same day is actually less tiring than splitting it out across several days.