Top Stories

It is with a heavy heart that the Alpha-1 Foundation shares the passing of a dear friend and leader, James Quill on Sunday, January 13th, 2019 in Bluffton, South Carolina. He was 67.
Jim was on the Alpha-1 Foundation Board of Directors since 2012 and recently served as the Vice Chair and Treasurer. He was a dedicated AlphaNet Coordinator for 10 years and retired as the General Manager for...

The National Institutes of Health (NIH) launched the new All of Us Research Program in the beginning of May 2018, with a set mission: to speed up health research breakthroughs.
The All of Us Research Program is a historic effort to gather data...

Teresa Kitchen, RN, was mixing Terry Young’s augmentation infusion when he got the call: his new lungs had arrived, and he needed to rush over to the hospital for his transplant.
Barnes Jewish Hospital in St. Louis, MO, was right across...

A beautiful day in April, sunny Miami Beach, the Indian Creek Country Club, and one big family of Alphas, friends, researchers, donors and industry partners, were the perfect combination for an excelling day to celebrate life with the 18th annual...

Researchers at the Washington University School of Medicine, in St. Louis, have developed a new way of delivering a gene-editing therapy that significantly increases the time a repaired gene can produce alpha-1 antitrypsin (AAT), in living mice....

Following the launch of the Alpha-1 European Expert Group Recommendations in March 2017, Alpha-1 Global, a program of the Alpha-1 Foundation, worked to establish an Alpha-1 Awareness Day in the European Union (EU). That day was established this...

Promising results for three drugs for the treatment of three rare liver diseases were presented at the International Liver Congress 2018, which took place April 11-15 at the Paris Expo Porte de Versailles, Paris, France.
Every year in April,...

The Alpha-1 Foundation proudly congratulates Alpha-1 pioneer and groundbreaking researcher, David H. Perlmutter, MD, for his recent appointment as Member of the American Academy of Arts and Sciences. The announcement was made on April 18,...

The idea that one day scientists will be able to 3D print replacement human organs has been a dream for many working in the field of regenerative medicine. New livers, hearts and kidneys, and the ability to print whole organs is still in the...

This is an excerpt of a story that originally appeared in the Spring 2013 issue of Alpha-1-To-One Magazine.
Mary Pierce was diagnosed with Alpha-1 on her 40th birthday, Feb. 16, 1987.
She’d been home sick from work for about a week...

During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great.
When Alexandra “Sandy” Lindsey, Susan Stanley, and John Walsh met one another in the early 1990s, they...

The Alpha–1 community, including AlphaNet and the Alpha–1 Foundation, is grieving the loss of our friend, and AlphaNet REACH program coordinator Bruce Parker, from Chattanooga, TN. Bruce, who was also an Alpha, parted on March 28, 2018...

During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great.
Dawn Bailey was overwhelmed with the new responsibilities of caring for Rob when he was released from an extended...