Treacher Collins Syndrome can be detected during early stages of IVF but the couple could not afford a second round and chose to move forward without the test.

There was a 50 per cent chance of their baby being born with the syndrome.

The family spoke with Phil and Amanda on This Morning and said that having "fantastic parents" will help Alice when she grows up and that is was "natural" for any couple to want a child together.

Simon and Vicky Moore on This Morning with their daughter Alice (Image: ITV)

They hope to raise more awareness for the syndrome and the TC gene mutation.

Vicky explained that TC isn't always genetic and there's a possibility a fresh mutation can begin and families who were not expecting the syndrome could have a child born with it.

Simon explained how his parents never treated him any differently when he was younger and he would do the same with his daughter.

Alice was born in February last year with TC and mum Vicky explained how lucky their little girl is: "Luckily she has got cheek bones, so it's not too bad, and her jaw is lovely so she doesn't have breathing problems.

"Her nose and nasal passage is very small, which is why she snores. She'll have an operation to anchor her hearing aid into her skull, like Simon has just had done."

Vicky explained that it will be up to Alice in the future when she grows up if she wants plastic surgery on her ears.