Donate to help Étienne | Un don pour aider Étienne

Étienne has a rare, life threatening genetic condition called Severe Combined Immune Deficiency, which affects an estimated 1 in 100,000. Learn more about the condition here.

There are no bone marrow matches for Étienne in the donor registry. It’s more difficult to find matches for him because of his ethnic diversity.

Étienne’s only long term treatment option is Gene Therapy, a type of bone marrow transplant in which he would be his own donor. He is enrolled in a clinical trial at UCLA in Los Angeles, and his transplant surgery will take place in April.

You can help us by donating toward the costs of Étienne’s surgery and recovery. Every amount helps.