I just got back from another trip to the dr's office because of continued problems. I have severe pain in my right side that is getting worse after going gluten free instead of better. Aside from a few GI issues that I had prior to going gluten-free, I have no other noticeable signs of Celiac. After doing a quick internet search on the Breath Test...(my curiosity always gets the best of me) it states on WIKI that a person that has bacterial overgrowth may have symptoms of Celiac as well. It can even cause the blunted Villi.

I did test positive during biopsy after a barely positive blood test.

I am going to maintain the gluten-free diet as I want to feel better, but I am starting to wonder IF I do in fact have Celiac. I have had everyone in my family checked for Celiac and I appear to be the only one that has it according to all of the testing. I know that testing can be wrong (many people here are diagnosed or self diagnosed by diet change) but it just leaves further doubts in my head.

I would LOVE to be able to go back to eating all of the yummy things I could before, but mostly I crave the ease of eating again. I have found pretty good substitues for most of the stuff that I love, but would like to be able to walk into a restaurant and order ANYTHING I wanted and not have to worry about it. But most of all I want to stop being in PAIN!!!! I have followed the gluten-free diet since January and although I know it takes time to feel better, I want to feel less pain instead of more.

and if you meant that one, that is the test that is done to test for infection in the gut/lower intestine due to fermentation of fructose not being able to transfer out into the blood stream (or something like that). it is also the test for fructose intolerance.

and if you meant that one, that is the test that is done to test for infection in the gut/lower intestine due to fermentation of fructose not being able to transfer out into the blood stream (or something like that). it is also the test for fructose intolerance.

it is a 4 hour breath test.

No it is not testing for Fructose, that was something they could have added to what I am doing, but I elected to no do it. I don't have a problem processing fruit so I elected to not do that at this time. My test is only for 2 hours and is checking for Bacterial Overgrowth in the small intestine.

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hmmm...okay. my daughter has fructose intolerance and it mimics celiac in a lot of ways. and that is what caused her gut infection. not being able to process the fruit. she can eat some fruits - just not all of them.

I surely hope that I don't have that problem....but so far it doesn't appear to be so. I just have unresolved Celiac symptoms that are just not going away despite the strict gluten-free diet that I adhere to. The most troublesome part is the severe pain in my right side. At first it would come and go, but now it is constant and NOTHING helps. They gave me pain medication to try and help, but that doesn't work. I don't think it is something that they can treat with pain meds, if those obviously aren't working, but IDK!! I am getting soooo frustrated and although I don't feel depressed at all, I do get very discouraged everytime they do another test and it shows nothing. I don't want to be sick, but I know that there is somehting going on and I want to know what!!

Thanks for listening to me vent!!

Good Luck with your daughter, and hopefully she will adjust to this way of eating pretty easily!

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I surely hope that I don't have that problem....but so far it doesn't appear to be so. I just have unresolved Celiac symptoms that are just not going away despite the strict gluten-free diet that I adhere to. The most troublesome part is the severe pain in my right side. At first it would come and go, but now it is constant and NOTHING helps. They gave me pain medication to try and help, but that doesn't work. I don't think it is something that they can treat with pain meds, if those obviously aren't working, but IDK!! I am getting soooo frustrated and although I don't feel depressed at all, I do get very discouraged everytime they do another test and it shows nothing. I don't want to be sick, but I know that there is somehting going on and I want to know what!!

Thanks for listening to me vent!!

Good Luck with your daughter, and hopefully she will adjust to this way of eating pretty easily!

Have you possibly tried taking food enzymes when you eat?

I have read on this forum that many poeple need to take them for a while because celiac can make it hard for your body to digest any food - even the easily digestable ones.

I just started to take them a few weeks ago and it is the first thing that has helped me since going gluten free (that I've noticed anyway).

I don't know if it would help you, but you could try it and it wouldn't hurt anything.

PS..The test was very tough for me to do....with the diet that you have to follow the day before and not eating anything for almost 16 hours was very tough. I did it because I want to feel better, but it was hard. Hopefully you will have an easier time with it!!

Upcoming Events

Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.

The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.

The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.

The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com

NEW ORLEANS GOURMET
GLUTEN-FREE mini GETAWAY
March 24 ~ 27, 2019
We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun. We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.
Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.
Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.
This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before. Check out our website for the complete itinerary and cost.
Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.
If you have any questions just give us a call at 410-939-3218.
Bob & Ruth
info@bobandruths.com
(410) 939-3218

Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts.
Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
ABOUT THE NOURISHED FESTIVALS
Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com

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