Maybe SLE maybe not.:
Diagnosis of rheumatologic disease is generally based on symptoms with support from lab. Sounds like you have a rheumatologic disease and are being treated with a rheumatologic agent perhaps by a rheumatologist. They can explain your particular situation better, but suffice it to say tests are not always right and a single test does not generally make or break a diagnosis.
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A urinary tract infection, also known as an UTI, may involve the kidney, ureter, bladder, or urethra. A common cause is an intestinal bacteria, E. coli. Common symptoms include a frequent urge to urinate, and pain or burning when urinating. Antibiotics are typically needed to treat UTIs.
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Common illness:
When you have a chronic disease, the question of whether it's an ordinary infection or a problem with your medication or your illness is troubling. Call your doctor and let her know you are worse, with new symptoms and to follow up on pending tests. Meanwhile, keep up with frequent water, soup, some crackers and rice to help with hydration.
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5

Cannot diagnose:
Without seeing you and having your records, history and exam it is impossible to comment. Suggest that the best course of action would be to find a good general internist and let them monitor your evaluation. Have no idea what symptoms you may be referring to. Gross hematuria suggests acute infection, tuberculosis or malignancy. Go and get seen, good luck.
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6

Many possible causes:
I am not clear as to where your md identified "swollen lymph noted." if you have a urinary tract infection you should be treated. Treatment may help with your discomfort. With respect to diagnosing lupus with these symptoms, careful examination and laboratory evaluation are required.
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8

Many symptoms:
You have many symptoms as described, and it appears a family hx as well of some diseases. You should see a dr. And tell them your symptoms and get lab testing including tests that would check/screen for autoimmune disorders, including lupus. Best wishes.
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11

Yes:
Sjogren's can have flares just like sle and there is frequently overlap between the two. Neither is desirable when organ involvement occurs since these are very difficult to treat or reverse.
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13

Worsening:
Flares are worsening of lupus signs and symptoms. Stress reduction, a healthy diet, routine exercise, and avoidance of excess sun exposure all help to reduce lupus flares. If you smoke, you must stop as it is deadly especially in lupus. Speak to your doctor about which medications to avoid. Also ask if you should be on Plaquenil (hydroxychloroquine) which has very few risks but offers significant protection.
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14

You and doctor:
Stress reduction, a healthy diet, routine exercise, and avoidance of excess sun exposure all help to reduce lupus symptoms and flares. If you smoke, you must stop as it is deadly especially in lupus. Speak to your doctor about which medications to avoid. Also ask if you should be on Plaquenil (hydroxychloroquine) which has very few risks but offers significant protection.
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A urinary tract infection (often called UTI) is most commonly caused by bacteria and usually refers to an infection in the bladder. Not all bacteria that grows from the urine represents an infection, so the need for antibiotics is determined by your doctor based on symptoms.
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