Hydronephrosis

Does anyone elses lo have hydronephrosis of the kidney(s)? My little guy is scheduled for surgery to correct his on Jan 30... I'd be interested in hearing from some other mamas who are in the same boat, especially if your lo has already been thru the surgery!

Does anyone elses lo have hydronephrosis of the kidney(s)? My little guy is scheduled for surgery to correct his on Jan 30... I'd be interested in hearing from some other mamas who are in the same boat, especially if your lo has already been thru the surgery!

Hi there. My son was born 3-19-11 with left hydronephrosis that was diagnosed in utero. Although the original plan was to monitor it his renal scan showed function of his left kidney under 5 percent. We underwent surgery on 12-20-11 to robe his left kidney. It's been almost 2 weeks and hes doing great. The first few days is hard while dealing with the aftermath of anesthesia. He was only in the hospital for 1 night and is thriving now. I hope everything goes great with you guys. I will keep you all in my thoughts.

Hi there. My son was born 3-19-11 with left hydronephrosis that was diagnosed in utero. Although the original plan was to monitor it his renal scan showed function of his left kidney under 5 percent. We underwent surgery on 12-20-11 to robe his left kidney. It's been almost 2 weeks and hes doing great. The first few days is hard while dealing with the aftermath of anesthesia. He was only in the hospital for 1 night and is thriving now. I hope everything goes great with you guys. I will keep you all in my thoughts.

Thanks so much for responding!! I'm really nervous about the anesthesia...what is it like for them afterwards? What can I do to keep him comfortable? Did your little guy seem to be in pain for a while? I'm trying to figure out how I'll feed him/change him etc without hurting him! :-/ My boy also has it on the left side, also diagnosed during pregnancy, he actually had it on both sides, but right side seems to be resolving. Any more info you can give me about the first few weeks after the surgery would ne much appreciated, I don't know anyone else who had a little baby go through surgery (my son will be almost 5 mos at time of surgery).

Thanks so much for responding!! I'm really nervous about the anesthesia...what is it like for them afterwards? What can I do to keep him comfortable? Did your little guy seem to be in pain for a while? I'm trying to figure out how I'll feed him/change him etc without hurting him! :-/ My boy also has it on the left side, also diagnosed during pregnancy, he actually had it on both sides, but right side seems to be resolving. Any more info you can give me about the first few weeks after the surgery would ne much appreciated, I don't know anyone else who had a little baby go through surgery (my son will be almost 5 mos at time of surgery).

What time is your sons surgery? For me it was hard not feeding him he didn't go in till 1130.Make sure to bring lots of toys he can play and chew on to keep him occupied before.My son was very sleepy after the procedure.It took him an hour to wake up in the recovery unit but he was sleeping on and off for 5 hours in the PICU. When he finally did wake up he was in alot of pain so much that they had to call the doctor to restart him on morphine.However, he had his kidney removed so the removal accounted for a lot of pain.While in recovery try and let him sleep and wake up naturally but do not be alarmed if he wakes up screaming and it might be best to have a bottle ready for him of either BM or formula to comfort him, however, he might not want it as sometimes the IV fluids he is getting fills him up and therefore he will not feel thirsty or hungry.Are they doing your sons surgery laparoscopically?If so the carbon dioxide they use to inflate the abdomen really was uncomfortable for him as he was unable to pass it.as far as holding him after at first it will look overwhelming with all the wires and IVs but what he is going to need most is you to hold him close.i was so scared at first but try and hold him on his right side almost laying him down in your arms and place all of the wires to the left of him.My son who is a very happy baby didnt smile after surgery at all but in the morning we got a smile from him and he was more interactive.He got the glycerin suppositories to help him pass gas and have a bowel movement.Watch for mucous accumulation in his nose and throat.Since it is an abdominal surgery it hurts them to exert themselves on breathing to clear excessive mucous (completely normal), tell the nurses to get you a sterile bulb syringe to help the little guy out.He was sent home with tylenol with codeine but only really needed it the first 3 days. Since peristalsis will slow due to the anesthesia you LO can get very constipated.My son is just getting over this.

What time is your sons surgery? For me it was hard not feeding him he didn't go in till 1130.Make sure to bring lots of toys he can play and chew on to keep him occupied before.My son was very sleepy after the procedure.It took him an hour to wake up in the recovery unit but he was sleeping on and off for 5 hours in the PICU. When he finally did wake up he was in alot of pain so much that they had to call the doctor to restart him on morphine.However, he had his kidney removed so the removal accounted for a lot of pain.While in recovery try and let him sleep and wake up naturally but do not be alarmed if he wakes up screaming and it might be best to have a bottle ready for him of either BM or formula to comfort him, however, he might not want it as sometimes the IV fluids he is getting fills him up and therefore he will not feel thirsty or hungry.Are they doing your sons surgery laparoscopically?If so the carbon dioxide they use to inflate the abdomen really was uncomfortable for him as he was unable to pass it.as far as holding him after at first it will look overwhelming with all the wires and IVs but what he is going to need most is you to hold him close.i was so scared at first but try and hold him on his right side almost laying him down in your arms and place all of the wires to the left of him.My son who is a very happy baby didnt smile after surgery at all but in the morning we got a smile from him and he was more interactive.He got the glycerin suppositories to help him pass gas and have a bowel movement.Watch for mucous accumulation in his nose and throat.Since it is an abdominal surgery it hurts them to exert themselves on breathing to clear excessive mucous (completely normal), tell the nurses to get you a sterile bulb syringe to help the little guy out.He was sent home with tylenol with codeine but only really needed it the first 3 days. Since peristalsis will slow due to the anesthesia you LO can get very constipated.My son is just getting over this.

As far as changing him just try not to concentrate of the wounds itself. Is he going to have drainage tubes? This might change things. For me I just made sure to keep his diaper loosened. Feeding him again just hold him on his right side mainly. You wont hurt him but you will be able to tell if he's feeling uncomfortable. For my son he only wanted to be sitting up or laying down flat do I was always almost holding him chest to chest with his right side on my supporting arm.if you have any questions you can think of before,during, or after feel free to email me (Ashley.mgomez@yahoo.com) I am a nurse and have gone through this with my son and i would love a chance to help you through this with any questions or anything even if u just need to vent about anxiety.

As far as changing him just try not to concentrate of the wounds itself. Is he going to have drainage tubes? This might change things. For me I just made sure to keep his diaper loosened. Feeding him again just hold him on his right side mainly. You wont hurt him but you will be able to tell if he's feeling uncomfortable. For my son he only wanted to be sitting up or laying down flat do I was always almost holding him chest to chest with his right side on my supporting arm.if you have any questions you can think of before,during, or after feel free to email me (Ashley.mgomez@yahoo.com) I am a nurse and have gone through this with my son and i would love a chance to help you through this with any questions or anything even if u just need to vent about anxiety.

My girl has hydronephrosis of the right kidney. She is due 3/1/12 though doctors are talking about inducing possibly a week earlier. I don't exactly know why, because everything I've read says if surgery is needed, it won't be for months afterward. Anyone else induced after being diagnosed in utero? We're going to talk to a surgeon 1/12.

My girl has hydronephrosis of the right kidney. She is due 3/1/12 though doctors are talking about inducing possibly a week earlier. I don't exactly know why, because everything I've read says if surgery is needed, it won't be for months afterward. Anyone else induced after being diagnosed in utero? We're going to talk to a surgeon 1/12.

I had a repeat section done. However my original was scheduled for 4/17 but with u/s results they performed it almost a month early on 3/19. The reason for this is sometimes it can correct itself and they way it would is by urinating after birth. So instead of keeping you till your due date and risk the renal pelvis dilating to a severe amount they would rather deliver early with a chance of helping it correct. Surgery will be within the first year but I would wait. My urologist tried to monitor my sons since it was minor however something happened in between his bi-monthly ultrasound and they had to remove the kidney. If you have any questions feel free to ask. Good luck.

I had a repeat section done. However my original was scheduled for 4/17 but with u/s results they performed it almost a month early on 3/19. The reason for this is sometimes it can correct itself and they way it would is by urinating after birth. So instead of keeping you till your due date and risk the renal pelvis dilating to a severe amount they would rather deliver early with a chance of helping it correct. Surgery will be within the first year but I would wait. My urologist tried to monitor my sons since it was minor however something happened in between his bi-monthly ultrasound and they had to remove the kidney. If you have any questions feel free to ask. Good luck.

Thank you for responding. Her kidney looks to be about 2x the size that it should be. :-/ I'm grateful that you two have posted as I've posted before and haven't gotten any response. My family is really freaking me out and trying to be supportive but they're just stressing me out. It's nice to talk to someone who has had experience.

Thank you for responding. Her kidney looks to be about 2x the size that it should be. :-/ I'm grateful that you two have posted as I've posted before and haven't gotten any response. My family is really freaking me out and trying to be supportive but they're just stressing me out. It's nice to talk to someone who has had experience.

I know what you mean it's so challenging dealing with something that no one else can identify exactly with. For this reason I love talking to others about this. I left my e-mail in an above response. Feel free to email me to talk or ask anything.

I know what you mean it's so challenging dealing with something that no one else can identify exactly with. For this reason I love talking to others about this. I left my e-mail in an above response. Feel free to email me to talk or ask anything.

Such great info, thank you SO much! I want to know as many of the little details as possible and feel like his urologist/surgeon is not able to give me that. My son's surgery sounds like it won't be as intense as your little guy's - he is not having the kidney removed, but is having a kink in the ureter cut out and the ureter reattached. Then he'll have a second surgery shortly after to have the tube removed. This surgery is not done laproscopically, they said they rather not do it that way on babies. Where was your son's surgery done? What did you have to bring to the hospital with you? What kind of clothes did he wear while in the hospital? What did you find easiest/most comfortable for him to wear in the first week or so after? I'm sure as the big day gets closer I will think of more questions, so as long as you don't mind, I will definitely be emailing you! I'm SO glad I finally found someone else whose baby had this!

Such great info, thank you SO much! I want to know as many of the little details as possible and feel like his urologist/surgeon is not able to give me that. My son's surgery sounds like it won't be as intense as your little guy's - he is not having the kidney removed, but is having a kink in the ureter cut out and the ureter reattached. Then he'll have a second surgery shortly after to have the tube removed. This surgery is not done laproscopically, they said they rather not do it that way on babies. Where was your son's surgery done? What did you have to bring to the hospital with you? What kind of clothes did he wear while in the hospital? What did you find easiest/most comfortable for him to wear in the first week or so after? I'm sure as the big day gets closer I will think of more questions, so as long as you don't mind, I will definitely be emailing you! I'm SO glad I finally found someone else whose baby had this!

to Ashleu...I was never told anything about being induced early, my son was born via c section 11 days early but that was due to high blood pressure... my ob totally freaked me out about his kidney, they sent me to a high risk ob center where they told me all sorts of crazy things and got me all nervous, but when I went to talk to the ped urologist, who is also the surgeon, he told me to go home and enjoy the rest of my pregnancy :-) such a relief after talking to him!! I know it's hard to do, but try not to get yourself too worried about it! Once your beautiful girl arrives, they'll monitor her to see if her kidney starts to correct itself, my son had both kidneys enlarged, but one had started to shrink back to the normal size :-) Just make sure you have a urologist you like!

to Ashleu...I was never told anything about being induced early, my son was born via c section 11 days early but that was due to high blood pressure... my ob totally freaked me out about his kidney, they sent me to a high risk ob center where they told me all sorts of crazy things and got me all nervous, but when I went to talk to the ped urologist, who is also the surgeon, he told me to go home and enjoy the rest of my pregnancy :-) such a relief after talking to him!! I know it's hard to do, but try not to get yourself too worried about it! Once your beautiful girl arrives, they'll monitor her to see if her kidney starts to correct itself, my son had both kidneys enlarged, but one had started to shrink back to the normal size :-) Just make sure you have a urologist you like!

Thank you! The surgeon I'm going to see is just a general pediatric surgeon. The medical care in my immediate area isn't the greatest. I'll see what he says and I will most likely get a second opinion (at a better facility) after that. Thank goodness we have good insurance! I also need to tell my family to back off a bit. My aunt left me a message telling me that she got the day off to come to the apt with me. Yeah, she wasn't invited. In fact I told her I didn't want her to come when she offered last week. Haha! I can't complain too much because my family is just trying to be supportive, but they're pushing it a bit. It's hard to relax when that's all they want to talk about. :-/

Thank you! The surgeon I'm going to see is just a general pediatric surgeon. The medical care in my immediate area isn't the greatest. I'll see what he says and I will most likely get a second opinion (at a better facility) after that. Thank goodness we have good insurance! I also need to tell my family to back off a bit. My aunt left me a message telling me that she got the day off to come to the apt with me. Yeah, she wasn't invited. In fact I told her I didn't want her to come when she offered last week. Haha! I can't complain too much because my family is just trying to be supportive, but they're pushing it a bit. It's hard to relax when that's all they want to talk about. :-/

We are in southern California and he had his surgery at kaiser. However, his doctors collaborated through children's hospital and kaiser. He had his done laparoscopically, they told me they preferred it to be this way to leave minimal scaring and quicker recovery. But who know doctors always disagree. The first two days it's easier and more comfortable to keep him in the hospital gown. It's loose and with the wires it's easiest. Though I brought regular shirts 1 size bigger and zip up pajamas also one size bigger. After the two days I mainly kept him in either shirts and diaper or the zip up pajamas. I would not recommend the button ones at first because it's to much fiddling around and he will be wanting to be held and not lay on his back very long.

We are in southern California and he had his surgery at kaiser. However, his doctors collaborated through children's hospital and kaiser. He had his done laparoscopically, they told me they preferred it to be this way to leave minimal scaring and quicker recovery. But who know doctors always disagree. The first two days it's easier and more comfortable to keep him in the hospital gown. It's loose and with the wires it's easiest. Though I brought regular shirts 1 size bigger and zip up pajamas also one size bigger. After the two days I mainly kept him in either shirts and diaper or the zip up pajamas. I would not recommend the button ones at first because it's to much fiddling around and he will be wanting to be held and not lay on his back very long.

Hi mommies! I was glad to get a little insight from those who have gone/going thru this. My lol girl Daisy 16weeks has this with left kidney. Found in utero at about 7.5months. She had follow up ultrasound at 11weeks. I guess slightly larger (peds urologist at childrens) said moderate to severe. He is having us back march 20 (6months) to be rechecked u/s and vcug test. I'm so nervous I hope it is correcting itself :< my poor baby. I hope the vcug isn't too painful either. i hate not knowing. And I am so afraid she may end up with an uti and i miss it making things way worse! I know I prob wont miss the signs but u never know. i just mommy could take it all away! But def helps hearing others experience thank you mommies!

Hi mommies! I was glad to get a little insight from those who have gone/going thru this. My lol girl Daisy 16weeks has this with left kidney. Found in utero at about 7.5months. She had follow up ultrasound at 11weeks. I guess slightly larger (peds urologist at childrens) said moderate to severe. He is having us back march 20 (6months) to be rechecked u/s and vcug test. I'm so nervous I hope it is correcting itself :< my poor baby. I hope the vcug isn't too painful either. i hate not knowing. And I am so afraid she may end up with an uti and i miss it making things way worse! I know I prob wont miss the signs but u never know. i just mommy could take it all away! But def helps hearing others experience thank you mommies!

Are they going to sedate for the vcug? Thy didn't with my son and honestly not to scare you but it was awful. They had to have him in restraints and the IV port in his left foot came out but he was so restrained we couldn't tell it was bleeding ugh it was very messy and he screamed for almost 30 minutes straight and then fell asleep. But between the IV and the catheter I really would of wished for sedation I felt so bad for him and I couldn't even help him. I will be praying for your little one.

Are they going to sedate for the vcug? Thy didn't with my son and honestly not to scare you but it was awful. They had to have him in restraints and the IV port in his left foot came out but he was so restrained we couldn't tell it was bleeding ugh it was very messy and he screamed for almost 30 minutes straight and then fell asleep. But between the IV and the catheter I really would of wished for sedation I felt so bad for him and I couldn't even help him. I will be praying for your little one.

Oh nevermind I re-read your post and realized your doctor only ordered the Vcug. My sons dr. Did a Vcug and renal scan simultaneously. The Vcug part was fairly quick and easy. Tool maybe 10 min and he didn't scream very much just at the catheter insertion. The renal scan part was terrible. Sorry for the worry. 14 weeks preggo and already having pregnancy brain. Still will be praying that it corrects itself.

Oh nevermind I re-read your post and realized your doctor only ordered the Vcug. My sons dr. Did a Vcug and renal scan simultaneously. The Vcug part was fairly quick and easy. Tool maybe 10 min and he didn't scream very much just at the catheter insertion. The renal scan part was terrible. Sorry for the worry. 14 weeks preggo and already having pregnancy brain. Still will be praying that it corrects itself.

I am 25 weeks pregnant and they found in my 18 week a dilation of her kidney... I had a follow up ultrasound a week later at the hospital. They told me they will monitor me now as preventative. I just went today for my 6 month appoint and ultrasound her kidney measured 15 mm. So I now have to go back to the hospital for another follow up on Friday. It's really stressful but most everything I've been reading and what my doctors say it's common.

I am 25 weeks pregnant and they found in my 18 week a dilation of her kidney... I had a follow up ultrasound a week later at the hospital. They told me they will monitor me now as preventative. I just went today for my 6 month appoint and ultrasound her kidney measured 15 mm. So I now have to go back to the hospital for another follow up on Friday. It's really stressful but most everything I've been reading and what my doctors say it's common.

I didn't read all the responses so I'm sorry if I'm repeating anything. My son, 16 months old and a twin, was diagnosed in utero at his 20 week ultrasound. It showed hydronephrosis of his left kidney. He had ultrasounds done at 1day and 1 week old, then a VCUG at 3 weeks. It revealed reflux and hydro of both kidneys. We monitored it for a year but at his 1 yr ultrasound and VCUG, it showed the reflux had not gotten any better (one side was worse) and that his left kidney was smaller than his right. So we did a DMSA scan and it revealed that his left kidney only functions at 27%. So we made the decision to do surgery to correct it so that there was no damage to the kidneys. He had open surgery, bilateral reimplantation of the ureters, on 10-31-11 when he was 14 mo old. He stayed in the hospital one night and went home the next day. He has done great so far. He was up playing before we even left the hospital and was wrestling with his sister the next day. I tried to keep him calm since he just had surgery, but there was no stopping him, lol. And he was only on pain meds for 2-3 days after he got home, and even then he wasn't taking it as often as it was prescribed. He still had swelling of his left kidney on his follow up ultrasound, but we are going to keep monitoring it because it was so close to surgery that it could have still been swollen from that. Feel free to ask if you have any questions, I'll be more than happy to answer them. Good luck!

I didn't read all the responses so I'm sorry if I'm repeating anything. My son, 16 months old and a twin, was diagnosed in utero at his 20 week ultrasound. It showed hydronephrosis of his left kidney. He had ultrasounds done at 1day and 1 week old, then a VCUG at 3 weeks. It revealed reflux and hydro of both kidneys. We monitored it for a year but at his 1 yr ultrasound and VCUG, it showed the reflux had not gotten any better (one side was worse) and that his left kidney was smaller than his right. So we did a DMSA scan and it revealed that his left kidney only functions at 27%. So we made the decision to do surgery to correct it so that there was no damage to the kidneys. He had open surgery, bilateral reimplantation of the ureters, on 10-31-11 when he was 14 mo old. He stayed in the hospital one night and went home the next day. He has done great so far. He was up playing before we even left the hospital and was wrestling with his sister the next day. I tried to keep him calm since he just had surgery, but there was no stopping him, lol. And he was only on pain meds for 2-3 days after he got home, and even then he wasn't taking it as often as it was prescribed. He still had swelling of his left kidney on his follow up ultrasound, but we are going to keep monitoring it because it was so close to surgery that it could have still been swollen from that. Feel free to ask if you have any questions, I'll be more than happy to answer them. Good luck!

BF and I went and talked to a surgeon about the tests that will be done after our girl is born and the possible causes for her hydro (reflux, different types of blockages) I was relieved when he said that I could carry to term so long as there wasn't a lot of pressure from the kidney on the abdominal wall, which at our last ultrasound there was not. We have another ultrasound this coming Tuesday and I'm praying for good news! I'm 33w so there's still some time but I'm hoping that the kidney isn't so big that she would have to be delivered early. We're just playing the waiting game until D day, now.

BF and I went and talked to a surgeon about the tests that will be done after our girl is born and the possible causes for her hydro (reflux, different types of blockages) I was relieved when he said that I could carry to term so long as there wasn't a lot of pressure from the kidney on the abdominal wall, which at our last ultrasound there was not. We have another ultrasound this coming Tuesday and I'm praying for good news! I'm 33w so there's still some time but I'm hoping that the kidney isn't so big that she would have to be delivered early. We're just playing the waiting game until D day, now.

We went for our last prenatal scan today and LO's kidney is looking better! The doctor said that the pressure from being so dilated may have forced out the (possible) obstruction. We still have to do testing when she is born, but we finally got some good news :-D she may not need surgery after all!

We went for our last prenatal scan today and LO's kidney is looking better! The doctor said that the pressure from being so dilated may have forced out the (possible) obstruction. We still have to do testing when she is born, but we finally got some good news :-D she may not need surgery after all!

The material on this website is provided for educational purposes only and is not to be used for medical advice, diagnosis, or treatment, or in place of therapy or medical care. Use of this site is subject to our terms of use and privacy policy

Advertising Notice

This Site and third parties who place advertisements on this Site may collect and use information about your visits to this Site and other websites in order to provide advertisements about goods and services of interest to you. If you would like to obtain more information about these advertising practices and to make choices about online behavioral advertising, please click here