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Help us to find a cure for this progressive, muscle-wasting condition which affects 1 in every 6,000 births. Exciting research progress means the first drugs are now in clinical trials, with others in the pipeline. We are the only UK charity solely dedicated to funding SMA research.

Our mission is to find a cure and treatments for Spinal Muscular Atrophy. Our research strategy is led by some of the world’s leading medical and scientific experts on SMA and our research programme is funded entirely by voluntary donations. Find out about our research activities…

This collaborative UK initiative for SMA research is the first of its kind for SMA & launches this month. It has come about because of impressive recent progress, leading to an ever-increasing need for research collaboration. The consortium will consist of world-class research/clinical experts in Oxford, Edinburgh, London & Sheffield Universities. Find out more…

WHY SUPPORT THE SMA TRUST?

Knowing that The SMA Trust is actively funding and driving research is both a comfort and a necessity. A cure for this devastating disease is clearly the ultimate goal but in the meantime, any research which leads to enhanced quality of life for anyone suffering from SMA must be supported, as any parent who has lost a child to SMA will understand. - Hannah RazzellSMA Type I, 19 December 2011 – 21 September 2012

UK SMA Research Consortium

The SMA Trust is funding a £1.3m UK SMA Research Consortium for SMA in the UK over the next 3 years. Announced in Sept 2015, it has come about because of impressive recent progress, leading to an ever-increasing need for research collaboration. The consortium will consist of world-class research/clinical experts based in Oxford, Edinburgh, London and Sheffield Universities. The intention is to form an initial nucleus that will, in time, draw together other leading UK scientists.
The consortium is being funded by donations and proceeds of the Muscle Power fundraising campaign which was launched in 2014.