My name is Nathan Russell and I am forever 6 years old. In December 2003, at the age of 5 months, I was diagnosed with a neuromuscular genetic disorder called Spinal Muscular Atrophy - Type 1 (SMA) and fought as hard as I could until April 28, 2010. My parents created this site so that my family and friends can check up on me and my little brother, Owen.