IBM Patient Video Support Session, June 2018

June 22 @ 4:00 pm - 6:00 pm EDT

IBM Patient Video Support Session

Friday, June 22nd 4PM EDT

IBM Patients, mark your calendar and join us for this free non-medical, patient-led, open discussion video support session with Mary Jane. Join to share experiences, ask questions, compare notes, and make new friends. See details below on how to join by video.

About joining this free online session

You do NOT have to register. Simply click the button above on Friday, June 22nd a little before the start time of 4 PM Eastern (3 PM Central, 2 PM Mountain, 1 PM Pacific) to join the IBM Patient Video Support Session.

Or Telephone:
Dial(for higher quality, dial a number based on your current location):
US: +1 669 900 6833 or +1 646 558 8656

Meeting ID: 429 940 803

International numbers available: https://zoom.us/u/Jwx9Z2P7

If this is your first video chat session, please login at least 20 minutes prior to ensure all works well for you and any downloads and installations you may require are completed by the time the session starts.

Please add info@understandingmyositis.org to your contacts and, once logged into Zoom, as a contact there for future meeting notifications.

About the IBM Patient Video Support Session

This session is tailored to those diagnosed with, or suspected of having, Inclusion Body Myositis (IBM) also known as sporadic Inclusion Body Myositis (sIBM).

In addition, we have a separate dedicated video support session for those with Polymyositis, Dermatomyositis, Necrotizing Autoimmune Myopathy, Juvenile Myositis, and other unspecified or nonspecific idiopathic inflammatory myopathies (myositis).

Why do we host these sessions separately?

The needs of IBM patients vs. the other inflammatory myopathy patients tend to be different.

For IBM, there are currently no treatment options available and IBM is a more progressive disease. IBM patients will usually require a wheelchair or powerchair at some point as remission is currently not something many IBM patients will experience.

For those with idiopathic inflammatory myopathies other than IBM, discussion tends to focus around treatment, treatment side-effects, remission and flares, upcoming clinical trials for PM/DM, and other related experiences that are different for these types of myositis.

Both our IBM and our Myositis Patient video support sessions are non-medical, patient-led, open discussion sessions where you can share experiences, ask questions, compare notes, and make new friends.

For some, this will be the first time ever seeing another myositis patient in person!

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