I am 21 years old and a college student just trying to survive my everyday life with Chiari Malformation, Ehlers Danlos Syndrome, Intracranial Hypertension, Mast Cell Activation Disorder, POTS, Tethered Cord, Gastroparesis, and Interstitial Cystitis.

Sunday, April 10, 2011

I`m Thankful

I am so Thankful that all I have to deal with is a Chiari. Yes, a Chiari is BAD and PAINFUL, but it is FIXABLE! :-) As the week went by I heard about people my age into drugs and death due to a car accidents. What do you do when you are into drugs?? That is a hard habit to break. And death, there is no going back. I believe that these things were put in my life as a sign from God to be THANKFUL and not dwell on the negative. It really could be so much worse. I truly am blessed in so many ways. Thank you for your continued support, prayers, and thoughts. <3

I am 19 years old and I have had 12 surgeries. I have Chiari Malformation, Ehlers Danlos Syndrome, Tethered Cord, Inter Cranial Hypertension, Mast cell Activation Disorder, Interstitial Cystitis, POTS, Chronic acute Mono and Cranial Vertebral Instability. I was granted a Make-A-Wish trip in December 2012. I have an amazing support system and the best docors around. Ask me any questions or give me any advice you may have.