Cancer Survivors Network - Comments for "Pazopanib Clinical Trial--very good results so far"http://csn.cancer.org/node/171035
Comments for "Pazopanib Clinical Trial--very good results so far"en-csnThanks so much for thathttp://csn.cancer.org/comment/999591#comment-999591
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<p><em>In reply to <a href="http://csn.cancer.org/comment/999300#comment-999300">i just got the CT scans but</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Thanks so much for that link. I went and applied to be a member. I have nodules on my lungs too but the drs say its a small amount of cancer so I caught it pretty early. Still scarey stuff. I think you should try the trials. I go to the Mayo in Jax and I love it. Will never do anything in my hometown again.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Wed, 09 Feb 2011 00:48:08 +0000candylandcomment 999591 at http://csn.cancer.orgi just got the CT scans buthttp://csn.cancer.org/comment/999300#comment-999300
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<p><em>In reply to <a href="http://csn.cancer.org/comment/999211#comment-999211">i am ...</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>they have yet to be read. my doc here will send the chest CT to Mayo for the docs there to do the comparison and gauge the rate of growth. we know there are nodules and we know that there were more last time than the very first CT i had a year prior so they are looking to gauge the trend. i suppose i'll learn soon if i am still on a monitoring program or if i need to go to trials.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 08 Feb 2011 16:26:07 +0000alapahcomment 999300 at http://csn.cancer.orgi am ...http://csn.cancer.org/comment/999211#comment-999211
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<p><em>In reply to <a href="http://csn.cancer.org/comment/999086#comment-999086">hey there</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>sorry about the results of the CT scan Eileen. Does the CT scan show increasing or growing nodules? when do they start the trials?</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 08 Feb 2011 14:14:20 +0000miladyxcomment 999211 at http://csn.cancer.orghey therehttp://csn.cancer.org/comment/999086#comment-999086
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<p><em>In reply to <a href="http://csn.cancer.org/comment/998114#comment-998114">Is anyone still using this</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I too have lung mets and work with folks at Mayo in Minnesota. They're doing some ground breaking trails.<br />
I wanted to suggest that you might try joining a Yahoo group called Adv-thyca because folks that post to that board regularly are dealing with similar kinds of cases themselves and they may be more able to answer your questions than here, though some followers on this board definitely have potential to help you. The yahoo group page that I am referring to can be found at http://health.groups.yahoo.com/group/adv-thyca/<br />
best to you. i just had six month follow up CT scans today and have many nodules my lungs and am no longer iodine avid. it's scary for sure but know you're not alone.<br />
eileen</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 08 Feb 2011 06:27:42 +0000alapahcomment 999086 at http://csn.cancer.orgIs anyone still using thishttp://csn.cancer.org/comment/998114#comment-998114
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<p><em>In reply to <a href="http://csn.cancer.org/comment/992913#comment-992913">I also have papillary</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Is anyone still using this discussion board? This is the only place I have found that discusses the clinical trials but the last person to respond was back in november or so. I have soo much I want to ask about. I will be starting those clinical trials with the Mayo soon. Please tell me someone is still out there and whats going on with them.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 06 Feb 2011 23:48:58 +0000candylandcomment 998114 at http://csn.cancer.orgI also have papillaryhttp://csn.cancer.org/comment/992913#comment-992913
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<p><em>In reply to <a href="http://csn.cancer.org/comment/992805#comment-992805">I can relate to your condition.</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I also have papillary thyroid cancer of the lungs. Just found out this past week. I hv 2 nodules. I go to the Mayo Clinic in Jax. I go next week to see what they are going to do for me. The endocrinologist there wants me in the clinical trials also. May due surgery to remove them. After reading about the drugs tho here online it sounds scary. They have horrible side effects. </p>
<p>I will do whatever they say tho. I'm gonna live..no ifs ands or buts about it.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 31 Jan 2011 01:11:47 +0000candylandcomment 992913 at http://csn.cancer.orgI can relate to your condition.http://csn.cancer.org/comment/992805#comment-992805
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<p><em>In reply to <a href="http://csn.cancer.org/comment/767514#comment-767514">It probably was there</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi RWBMG8668</p>
<p>I have papillary thyroid carcinoma with mets in the lungs, diagonised recently in July 2010. My Tg count after surgery and RAI is 1500 and scares the hell out of me. So I guess asking my endo abt this clinical trial wouldn't be a bad idea. I live in los angeles. CA</p>
<p>Any advice.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Sun, 30 Jan 2011 21:58:07 +0000nkongovicomment 992805 at http://csn.cancer.orgRecent 8/2010 pazopanib trial -lookinghttp://csn.cancer.org/comment/945035#comment-945035
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<p><em>In reply to <a href="http://csn.cancer.org/comment/767605#comment-767605">TG level</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>I am also doing a clinical trial involving pazopanib and chemo. Just had first re-check last week. Results showed no new and slight shrinkage in 5 locations. 4 small lung and 1 small mass under surface of skin on back. Dealing with melanoma stage4.Will stay on trial going into new cycle period. Anyone else? 11/2010</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 16 Nov 2010 17:16:44 +0000longiecomment 945035 at http://csn.cancer.orgTG levelhttp://csn.cancer.org/comment/767605#comment-767605
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<p><em>In reply to <a href="http://csn.cancer.org/comment/767589#comment-767589">i am sorry you are going thru this</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>TG level was on Meds and it is now in the low thirties. I have my Endo Thu next week and Mayo in the beginning of Feb. </p>
<p>The scans look really good right now its just no one knows for how long this drug is going to work or what the long term side affects are going to be.</p>
<p>I will do what I have to do though I have a 5 year old boy that needs me and I plan on doing what I can to make sure that I am around as long as possible. </p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 09 Jan 2010 21:36:32 +0000RWBMG8668comment 767605 at http://csn.cancer.orgi am sorry you are going thru thishttp://csn.cancer.org/comment/767589#comment-767589
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<p><em>In reply to <a href="http://csn.cancer.org/comment/767548#comment-767548">i am on facebook</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>But I am glad u r talking and connecting. </p>
<p>Was your tg of 80 on meds or unsuppressed? How high is it now?</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/171035%23comment-form">Log in</a> or <a href="/user/register?destination=node/171035%23comment-form">register</a> to post comments</span></li>
</ul>Sat, 09 Jan 2010 21:11:51 +0000miladyxcomment 767589 at http://csn.cancer.org