Kidney problems during pregnancy

After my last pregnancy (and some issues with protein in the urine - levels over 4000 by the end) I was diagnosed with Alports syndrome through kidney biopsy. I am now pregnant again and just had a 24hr urine test and my protein is already rising - it was 240 - and it didn't starting rising with my son till the beginning of the third trimester. My creatinine (sp) clearance was also low (.6 in a range where the lowest normal is .6 and anything under is abnormal). It was always high normal before. Are my kidneys showing signs that they are being stressed? My high risk doctor is a bit of an ass and scared the crap out of me when I met with him a few weeks ago but he hasn't called me about the most recent test results.

Any one else have any kidney issues during pregnancy?

After my last pregnancy (and some issues with protein in the urine - levels over 4000 by the end) I was diagnosed with Alports syndrome through kidney biopsy. I am now pregnant again and just had a 24hr urine test and my protein is already rising - it was 240 - and it didn't starting rising with my son till the beginning of the third trimester. My creatinine (sp) clearance was also low (.6 in a range where the lowest normal is .6 and anything under is abnormal). It was always high normal before. Are my kidneys showing signs that they are being stressed? My high risk doctor is a bit of an ass and scared the crap out of me when I met with him a few weeks ago but he hasn't called me about the most recent test results.

Yes, your kidneys are being stressed due to pregnancy. You would benefit from seeing a nephrologist, when your levels decrease it means your function is diminishing, very serious. Sounds like you are pre-eclamptic too.

Yes, your kidneys are being stressed due to pregnancy. You would benefit from seeing a nephrologist, when your levels decrease it means your function is diminishing, very serious. Sounds like you are pre-eclamptic too.

I have kidney disease but I don't have any insight. I suffered through 5 years of unsuccessful infertility treatment only to get pregnant 6 months after stopping treatment. That ended as ectopic and 10 months later I'm pregnant again. I'm 7 weeks now and see the specialist in a month. I know I'm high risk but I don't know what the specialist will do differently. I know how awful you must feel and wish you the best.

I have kidney disease but I don't have any insight. I suffered through 5 years of unsuccessful infertility treatment only to get pregnant 6 months after stopping treatment. That ended as ectopic and 10 months later I'm pregnant again. I'm 7 weeks now and see the specialist in a month. I know I'm high risk but I don't know what the specialist will do differently. I know how awful you must feel and wish you the best.

I'm sorry to hear you have kidney issues as well. It is scary, especially how some doctors choose to handle it. I hope everything goes really well with your pregnancy. As far as I know, you have to get increased blood tests and 24 hr urine to check kidney status and more ultrasounds further on in pregnancy. I actually just switched doctors because my old doctor wasn't going to refer me to high risk until my nephrologist told them to. They were just treating it like another pregnancy even though I had issues during my last pregnancy. And then I went to the high risk doctor who scared the crap out of me and told me that my kidneys were going to fail, etc. So I decided to switch and they seem much more on the ball.

I'm sorry to hear you have kidney issues as well. It is scary, especially how some doctors choose to handle it. I hope everything goes really well with your pregnancy. As far as I know, you have to get increased blood tests and 24 hr urine to check kidney status and more ultrasounds further on in pregnancy. I actually just switched doctors because my old doctor wasn't going to refer me to high risk until my nephrologist told them to. They were just treating it like another pregnancy even though I had issues during my last pregnancy. And then I went to the high risk doctor who scared the crap out of me and told me that my kidneys were going to fail, etc. So I decided to switch and they seem much more on the ball.

I'm due 09/27, how about you? I did my 24 hr urine and blood testing last Friday. My problems weren't pregnancy induced so the extra tests were ordered with my OB panels. I see my CNP every other week right now instead of the usual every 4 weeks. I've had some light vaginal bleeding off and on for the last week. I'm worried that I'm miscarrying so I had 2 hcg draws this week, hopefully I get an answer today. I don't know where you live but I found a few high risk programs in Chicago that have kidney disease listed as a specialty. It's a 2 hour drive but I might visit one depending on how things go. I'm sure you could find something similar if you're interested.

I'm due 09/27, how about you? I did my 24 hr urine and blood testing last Friday. My problems weren't pregnancy induced so the extra tests were ordered with my OB panels. I see my CNP every other week right now instead of the usual every 4 weeks. I've had some light vaginal bleeding off and on for the last week. I'm worried that I'm miscarrying so I had 2 hcg draws this week, hopefully I get an answer today. I don't know where you live but I found a few high risk programs in Chicago that have kidney disease listed as a specialty. It's a 2 hour drive but I might visit one depending on how things go. I'm sure you could find something similar if you're interested.

I am due July 12th. I always had blood in the urine, but my mother always told me it was hematuria and that it ran in the family so I never got it checked out even though the doctors always told me to. During the pregnancy my protein went out of control and I had a kidney biopsy after and thats when they told me I had a genetic disorder called alport syndrome. Usually in women it isn't bad, but I guess it can be depending on what type you have and pregnancy can put stress on the kidneys and trigger a lot of kidney issues. It was then my mom chooses to tell me, "oh, alport syndrome. I know about that. My brother died of it." She didn't think it was relevant. Um...thanks? Â Last time my creatinine was ok, and this time its not. And the protein is also starting to go up much earlier :-/ I wish someone had told me about the risks but they made it seem like I would have the baby and everything would be fine, and now I find out that it can possibly stress my kidneys enough that they fail.

Thanks for the tip about the clinic. I am in NY, but I am sure there has to be something along those lines here. If it gets bad enough I will have to look into it. My high risk doctor was such an ass and was telling me how I should have consulted him before I got pregnant so he could have done testing and told me I was risking my life before getting pregnant. And then he starts going on how if my Â kidneys don't fail now, it could be soon, etc etc. And my general ob wasn't even going to send me to a high risk. They were basically handling it as, well if your kidneys fall out we'll do something. They didn't even research what the condition was and I had to remind them about it every time I came in. So I switched. We'll see how it is now. How long have you known you had kidney disease?I'm sorry for the book, but I am just so frustrated about how this whole thing was handled and I wonder if most people understand why I am upset. Grrrr....ok, ot rant over.Â Â

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I am due July 12th. I always had blood in the urine, but my mother always told me it was hematuria and that it ran in the family so I never got it checked out even though the doctors always told me to. During the pregnancy my protein went out of control and I had a kidney biopsy after and thats when they told me I had a genetic disorder called alport syndrome. Usually in women it isn't bad, but I guess it can be depending on what type you have and pregnancy can put stress on the kidneys and trigger a lot of kidney issues. It was then my mom chooses to tell me, "oh, alport syndrome. I know about that. My brother died of it." She didn't think it was relevant. Um...thanks? Â Last time my creatinine was ok, and this time its not. And the protein is also starting to go up much earlier :-/ I wish someone had told me about the risks but they made it seem like I would have the baby and everything would be fine, and now I find out that it can possibly stress my kidneys enough that they fail.

Thanks for the tip about the clinic. I am in NY, but I am sure there has to be something along those lines here. If it gets bad enough I will have to look into it. My high risk doctor was such an ass and was telling me how I should have consulted him before I got pregnant so he could have done testing and told me I was risking my life before getting pregnant. And then he starts going on how if my Â kidneys don't fail now, it could be soon, etc etc. And my general ob wasn't even going to send me to a high risk. They were basically handling it as, well if your kidneys fall out we'll do something. They didn't even research what the condition was and I had to remind them about it every time I came in. So I switched. We'll see how it is now. How long have you known you had kidney disease?I'm sorry for the book, but I am just so frustrated about how this whole thing was handled and I wonder if most people understand why I am upset. Grrrr....ok, ot rant over.Â Â

Not well and I am officially switching to a new OB. My hcg rose from 33k to 40k in 3 days. The nurse I spoke to blatantly lied that it was just fine and no cause for concern, but the Dr ordered progesterone "just in case." They refused to do an u/s so I don't even know if the baby is alive at this point. I've been sitting here crying trying to figure out what to do next. I'm not familiar with Alperts(sp?) but I'm beginning to hate all doctors. How is the new dr working out?

Not well and I am officially switching to a new OB. My hcg rose from 33k to 40k in 3 days. The nurse I spoke to blatantly lied that it was just fine and no cause for concern, but the Dr ordered progesterone "just in case." They refused to do an u/s so I don't even know if the baby is alive at this point. I've been sitting here crying trying to figure out what to do next. I'm not familiar with Alperts(sp?) but I'm beginning to hate all doctors. How is the new dr working out?

I am so, so sorry to hear that. And shame on them for not at least getting you in for an ultrasound so you can at least see what is going on. I really hope that your baby is healthy and that all of this is just a momentary scare. I think changing doctors is a good idea if they are not going to take your fears seriously.Â

Â Alports is a genetic disorder which affects the kidneys. It can cause kidney failure, deafness before age 30 and vision problems, usually much worse in boys, although they think I might have the autosomal recessive form which would mean that it can effect either sex. Not good :(

Please keep me posted and if you ever need to talk my email is emily.neuschotz@gmail.com.Â

I am so, so sorry to hear that. And shame on them for not at least getting you in for an ultrasound so you can at least see what is going on. I really hope that your baby is healthy and that all of this is just a momentary scare. I think changing doctors is a good idea if they are not going to take your fears seriously.Â

Â Alports is a genetic disorder which affects the kidneys. It can cause kidney failure, deafness before age 30 and vision problems, usually much worse in boys, although they think I might have the autosomal recessive form which would mean that it can effect either sex. Not good :(

Please keep me posted and if you ever need to talk my email is emily.neuschotz@gmail.com.Â

I'm sorry to hear about what you're going through. I have sponge kidney disease and have a lot of UTIs. My last pregnancy I had a nasty kidney infection. Both of my previous pregnancies I had Preeclampsia and I think my kidneys have something to do with it. I spill protein, white blood cells, nitrates, etc periodically. I just had a 24 hr urine test that came back good. My dr.'s scared me too and I guess MSK is rare, not much is known on it during pregnancy. I'm hoping my kidneys make it through this one and I pray I wont have preeclampsia again. I would definitely switch doctors and get a team together- a high risk ob, maybe a perinatologist, and a nephrologist. My best dr is my cardiologist and he's monitoring my kidneys, my kidney dr was no help. I've made it clear that if things start going south with my kidneys or heart then a decision has to be made about delivering the baby, it's a hard situation all around.

I'm sorry to hear about what you're going through. I have sponge kidney disease and have a lot of UTIs. My last pregnancy I had a nasty kidney infection. Both of my previous pregnancies I had Preeclampsia and I think my kidneys have something to do with it. I spill protein, white blood cells, nitrates, etc periodically. I just had a 24 hr urine test that came back good. My dr.'s scared me too and I guess MSK is rare, not much is known on it during pregnancy. I'm hoping my kidneys make it through this one and I pray I wont have preeclampsia again. I would definitely switch doctors and get a team together- a high risk ob, maybe a perinatologist, and a nephrologist. My best dr is my cardiologist and he's monitoring my kidneys, my kidney dr was no help. I've made it clear that if things start going south with my kidneys or heart then a decision has to be made about delivering the baby, it's a hard situation all around.

It really is. I just really hope that it is the same as my last pregnancy. Spilling a lot of protein but otherwise ok. At least now, I can be confident that I will be watched by people who actually seem to know what they are doing. You have heart issues as well? The new high risk doctor just told me that he thinks I may have been preeclamptic during my last pregnancy, but my blood pressure wasn't horrible. Is that even possible? I was told kidney disease could cause blood pressure issues so it is definitely possible it contributed in your case. Good luck with your pregnancy! I hope your kidneys don't give you issues, other than what is expected.

It really is. I just really hope that it is the same as my last pregnancy. Spilling a lot of protein but otherwise ok. At least now, I can be confident that I will be watched by people who actually seem to know what they are doing. You have heart issues as well? The new high risk doctor just told me that he thinks I may have been preeclamptic during my last pregnancy, but my blood pressure wasn't horrible. Is that even possible? I was told kidney disease could cause blood pressure issues so it is definitely possible it contributed in your case. Good luck with your pregnancy! I hope your kidneys don't give you issues, other than what is expected.

Were you spilling a lot of protein prior to your pregnancy? Yes I have heart valve disease, I must have gotten the short end of the genetic stick lol. I'm being watched for that and the kidneys, I'm more worried about my heart but drs are more worried about the kidneys. Do you remember what you're blood pressure was in your last pregnancy? Mine was normally low around 100/60 but shot up to 180/110. I spilled a lot of protein with my first pregnancy when my BP went up (preeclampsia). With my second I had post partum preeclampsia and it hit 10 days after delivery. My BP went up within a few hours and when I got to the ER I was hospitalized. I didn't spill protein until after my BP was controlled and peed out 8 lbs of fluid over the first night there so it was deemed "pregnancy induced hypertension". It was all super strange and the drs acted like they had no idea what was going on, I felt so alone and scared. Coping with preeclampsia alone was terrifying, I fear that a lot with this pregnancy. With this pregnancy I'm watching everything like a hawk and I'm sure my drs hate me! Do you have a blood pressure monitor? Maybe you can have one just in case, I keep a record of my BP so I can tell if my BP is starting to look unusual. That's interesting your ob said that, my drs don't say much about it. My cardiologist just said that he's had women with it who had children but the pregnancies weren't without their complications. I'm due July 22nd with a boy, I've had a lot of mixed emotions with the pregnancy but I'm hoping everything will be okay. It's nice to know that there's other women out there dealing with crummy kidneys too. Do you have support at home?

Were you spilling a lot of protein prior to your pregnancy? Yes I have heart valve disease, I must have gotten the short end of the genetic stick lol. I'm being watched for that and the kidneys, I'm more worried about my heart but drs are more worried about the kidneys. Do you remember what you're blood pressure was in your last pregnancy? Mine was normally low around 100/60 but shot up to 180/110. I spilled a lot of protein with my first pregnancy when my BP went up (preeclampsia). With my second I had post partum preeclampsia and it hit 10 days after delivery. My BP went up within a few hours and when I got to the ER I was hospitalized. I didn't spill protein until after my BP was controlled and peed out 8 lbs of fluid over the first night there so it was deemed "pregnancy induced hypertension". It was all super strange and the drs acted like they had no idea what was going on, I felt so alone and scared. Coping with preeclampsia alone was terrifying, I fear that a lot with this pregnancy. With this pregnancy I'm watching everything like a hawk and I'm sure my drs hate me! Do you have a blood pressure monitor? Maybe you can have one just in case, I keep a record of my BP so I can tell if my BP is starting to look unusual. That's interesting your ob said that, my drs don't say much about it. My cardiologist just said that he's had women with it who had children but the pregnancies weren't without their complications. I'm due July 22nd with a boy, I've had a lot of mixed emotions with the pregnancy but I'm hoping everything will be okay. It's nice to know that there's other women out there dealing with crummy kidneys too. Do you have support at home?

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