Discussions By Condition: I cannot get a diagnosis.

in alot of pain no doctor can tell me what's worng!

helloi have had problems for a year now. started out with numbness in my legs and feet with pain in my back. the numbness in my feet went away for a little bit and has now come back. i have very sharp pains in the side of my butt! it shoots pains down my legs. i can't hardly work any more i'm in so much pain when i work to much. i sit at home on a heating pad all the time to try and releive the pain. i get so tired. by the time i get up and get ready for work i'm ready for a nap. i have been very active in my life and always on the go. now i'm 47 and having these problems. i really can't sleep anymore. when i do get to sleep i will sleep a couple of hours and wake up and then it's so hard for me to fall back to sleep. the doctors have told me it can be ms or fibromyalgia. i have mri's done and ct scan's done. my last lab results came back normal except it said i had a past exposure to epstein barr virus....what ever that means....i'm just sick and tired of being sick and tired. i want to find out what is wrong and try to get my self and life back on track. anyone have any info that i could gather? i would be so gratefull!!!!thanks! Junnebugg79

8 Replies:

It took many years for me to get a diagnosis after being told my symptoms were fibromyalgia, yes I do have it but, they overlooked my low back pain and leg/knee pain as that, instead of looking into something else which lead to my diagnosis of Degenerative Disc Disease. If they had picked up on this many yrs ago I wouldn't be pegged as Severe instead of Mild or Moderate. Get them to check you for degenerative changes in your bones.tendons & cartilege cus this can cause horrible pain. Another syndrome that sometimes goes hand and hand with FMS is Myofascial Pain Syndrome, also check that out. Good luck hon As EvErCat

helloi have had problems for a year now. Started out with numbness in my legs and feet with pain in my back. The numbness in my feet went away for a little bit and has now come back. I have very sharp pains in the side of my butt! It shoots pains down my legs. I can't hardly work any more i'm in so much pain when i work to much. I sit at home on a heating pad all the time to try and releive the pain. I get so tired. By the time i get up and get ready for work i'm ready for a nap. I have been very active in my life and always on the go. Now i'm 47 and having these problems. I really can't sleep anymore. When i do get to sleep i will sleep a couple of hours and wake up and then it's so hard for me to fall back to sleep. The doctors have told me it can be ms or fibromyalgia. I have mri's done and ct scan's done. My last lab results came back normal except it said i had a past exposure to epstein barr virus....what ever that means....i'm just sick and tired of being sick and tired. I want to find out what is wrong and try to get my self and life back on track. Anyone have any info that i could gather? I would be so gratefull!!!!Thanks! Junnebugg79i had the same issue and finally just had back surgery on my l-5 s-1 nerve root decompression try to find a good back surgeon in your area

Look at hypermobility syndrome it can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin, and lungs. Seems lots of people are diagnosed with fibromyalgia to later find they have hypermobility syndrome.A

Look at hypermobility syndrome it can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin, and lungs. Seems lots of people are diagnosed with fibromyalgia to later find they have hypermobility syndrome.ADo you mean Ehler-Danlos syndrome? Can you recommend a site with good information?

Sorry it took so long to reply,I went to the Doctor yesterday and while I was there I asked him the very same thing. He said without genetic testing there is no way of knowing. I am still trying to find more information myself, this is one good site I found,http://www.hypermobility.org/.The Doctor has put me on a 'as required' regement and it worked this month. 2 days of lowdosage steroids one time a week as needed. I can report I only had to do this 2 weeks this month. I also use non steroidal anti-inflammatory drugs but haven't needed them that often.One of the keys to him asking me to try the lowdosage steroids was Lorcet,Vicodin,Lortab did not work for me but non steroidal anti-inflammatory drugs would.I should of addressed this issue years ago, so I am just now learning myself. A