I don’t even know what to call this anymore

We met with Dr. Reynolds today and have a tentative I place to manage his medications. For the next 7 days, Gavin will have blood work done every other day.

We need to get more data points, if that makes sense.

We did learn that Lithium is not metabolized in the liver. Instead it has more to do with the kidneys as it’s a salt. Basically, we aren’t sure what the impact of an autonomic disorder would be.

It doesn’t make sense that Gavin’s numbers would be higher because Gavin is on medication to increase water retention, in order to bolster his blood pressure. This would dilute the lithium and cause the numbers to be lower, if anything.

This is really unusual and I just don’t know what to do.

We go in the morning for bloodwork and we’ll see what his levels are. Dr. Reynolds is very concerned about this because lithium is so dangerous.

He wants to monitor Gavin’s levels for the next week and see what happens. At this point, we don’t know enough about what’s going to say that Gavin should be off the lithium all together. There’s risk involved with Gavin going off his meds a slipping into a manic phase.

When Gavin is manic, he experiences delusions of grandeur.

Gavin will try and jump out his window because he thinks he can fly. Think I’m kidding? Think again.

We have to get a hold of his neurologist and find out if an autonomic disorder could affect the way lithium is processed. It’s very likely that there simply isn’t enough known about this to answer that question.

At least we have good doctors working on this.. The wait for information however, is a brutal one.

I’m not fond of this at all.

**Thanks for reading**

-Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Take a second and answer today’s Autism Parenting poll

How challenging is it to raise a child with Autism?

1 (Easy Peasy)

2

3

4

5

6

7

8

9

10 (Extremely Difficult)

>100

In the beginning, I'd say a 9 or a 10. It gets easier as he gets older.

It has its ups and downs, depending on my ability.

Get's harder when they reach adulthood

It's just different. Sometimes it goes up when I am able to supply the transitions/executive functioning needed. Other times it is more challenging because either I have less resources or she is being challenged more.

Waiting is never easy, but especially when it pertains to the health of our children. I wish I knew more about the medicine to offer any kind of intelligent observation, but as I don't I will just say that, as always, we're rooting for you guys and to keep on hanging on.

The Autism Dad Podcast

Support the Cause

This site not only helps people across the globe but it’s also helping me provide for my own struggling special needs family. If you’re so inclined, you can help support my efforts by clicking the donate button below.