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Living with Arthritis: Debbie’s Story

Deirdre found out she had rheumatoid arthritis (RA) in December of 2000. “I was
stiff in the morning,” she says. “I had sore hands and feet. I would need to run
water over them in the morning. But it was very sporadic. One joint would hurt,
then not hurt. And at first, the pain would usually be gone by about 11:00 in
the morning. My husband and I had been cutting tile, and I thought the pain and
stiffness were because of that. Then I started wondering if I was allergic to my
apartment. Finally I went to a doctor. She learned that she was experiencing
classic symptoms of RA.”

Deirdre was leading a busy life with her husband and year-old son, Lukas. She’s
an artist, now 44 years old, and at the time, she was spending most of her time
at home with Lukas and doing a little bit of freelance work.

When she found out she had RA, “I cried for six months. It seemed like there was
no way out.” But now, she says that “getting the diagnosis and going through the
pain was the most spiritual thing I’ve ever gone through. There was so much
pain, and after I started getting treated, I became thankful for small things. I
was thankful that I could go down stairs. I was thankful that I could dress my
son and comb my hair.”

She says that having RA has made her more aware of her body. “I know now that
little signs probably mean something. I feel more in tune.”

Deirdre takes methotrexate by injection once a week and prednisolone by mouth
daily. The methotrexate causes hair loss and loss of appetite. Initially, it
also caused her menstrual periods to be irregular, but she started taking folic
acid and they have become normal. Prednisolone is a steroid that can cause
weight gain. “I worried about ‘blowing up,’ she says, but the doctor said it was
a low dose, and I haven’t gained weight. She did notice that her appetite
increased as soon as she started on the prednisolone, but she has managed to
keep her weight at a healthy level.

Deidre says she feels grateful for medical technology. “I was so grateful that
methotrexate was available. It gave me such a feeling of security, because it
helps with the pain so much.”

After she found out she had RA, Deirdre joined a support group. “I was in that
for six months, and then I started working more, so I kind of stopped. But it
was helpful. They would answer questions I had, like about medicines. You could
just call someone and they’d talk to you. It was interesting to hear what other
people go through. And they were fun. They had a sense of humor about their
bodies.

“The women in that group were older. The youngest was about 25 years older than
me. They’d tell me I was lucky that I have methotrexate. They showed me their
hands, and they looked like claws.”

Deirdre has made several changes in her lifestyle to manage her RA. “Over night,
I became vegetarian,” she says, “because there’s a theory that animal protein
can cause inflammation. I started drinking hardly any alcohol, because
methotrexate is hard on your liver and I didn’t want to do anything to aggravate
that. I stopped eating eggs, although I do get eggs from bread and things like
that. And I stopped eating butter. I mostly use olive oil now. And I get a lot
of omega-3 fatty acids, because that’s supposed to help too.”

She knows that getting regular exercise is good for her joints, so she’s made a
point to work that into her life. “At first I tried aqua-jogging, but that hurt
my elbows so I had to stop. Right now, I do elliptical training for about 30
minutes twice a week. That’s easy on my knees. And I ride my bike everywhere I
go.

“Movement helps with pain,” she continues. “If I do it, it hurts less. I can’t
exercise when I’m having a flare up, but if I’m just stiff, I do it. You want to
keep your muscles strong, and if you stop exercising, it’s hard to get back to
it.”

Making these kinds of changes wasn’t that difficult, Deirdre says. “I was so
desperate to get my life back that it was easy to do.”

She worried that RA would affect her work, because as an artist, she uses her
hands all the time to draw and to use the computer. “But people in my support
group reminded me that I’m actually kind of lucky. I don’t have the kind of job
where I have to stand, I don’t have to move furniture around, lay bricks,
whatever. And I do things ergonomically. If I don’t, it stresses out my joints.”

Deirdre has a lot of freelance work now, and says that the RA really hasn’t
affected her ability to keep working.

Has RA affected her relationships? “Well, I got divorced,” she answers. “My
husband wasn’t supportive. I was trying to hide it from him. And then he would
tell me I was going to be really deformed. It just wasn’t a good situation. And
he felt like everybody was saying ‘poor Deirdre,’ but nobody was realizing what
an impact this had on him. In the end,” she acknowledges, “it was probably a
gift that we didn’t stay together.”

Deirdre doesn’t feel as though she lets RA affect her life all that much now, as
long she takes care of herself. She has an active social life, a productive and
satisfying work life, she enjoys her time with Lukas and she basically does what
she wants to do.