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Wednesday, 10 August 2016

Today was a big day for all of us. The biggest of this
year so far - bee had his final assessment (of 3 long weeks) at the
child development centre.It was a year ago we first raised concerns that developmentally
he wasn't where he should have been and the ball started rolling -
although we had an inkling from very young that things weren't quite
right.This year has been full of frustration, anger, confusion, doubt
and a real struggle for us as a family. Not everyone saw what we did
and a lot of the time we were dismissed with 'he's only young, he's just
2, he will grow out of it etc' which made my head full of self doubt
and questioned if I was going crazy.Today my beautiful little man was diagnosed with Autism
spectrum disorder with high sensory processing issues (inclusive of the
ASD). It wasn't a shock or anything, it was fully what we were expecting
and after watching him through the assessment sessions we could see
that the professionals were seeing what we were, so when they came out
and said it it was a big relief. We had been listened to.Bee has many struggles from sensory issues to fine and gross
motor skills, he's clumsy, he struggles with communication and he's very
on his own terms , he has zero danger awareness or stranger danger and I
know we have a long journey ahead of us with 1-2-1 speech therapy, more
physio assessments , OT workshop, setting his support up through
nursery and the decision if we want to apply for the SEN nursery or not.
But we are ready as a family to face this all.Now that's all said, let me tell you about the positives of my incredible whirlwind boy!He loves everyone.He has an amazing memory.He can work out how things work in seconds!He has the most infectious smile.Everyone who spends time with him, loves him!He's a goober and can make you laugh.He can be very gentle and loving.He LOVES hugs and being squeezed!He makes my heart melt every night as he falls asleep next to me.There's so so much more I could write!I'm so incredibly blessed to have him in my life and even
though life has taken us the back roads with him, it's makes every
little corner so much more meaningful.I love you Bee!