Thursday, July 26, 2012

Day +110

Our flight is booked and we are heading home on Tuesday. Hooray!

Jacob has been doing well. He had his adenovirus treatment on Monday and the doctor wants to do one more next Monday before we leave. Even though the latest adeno count is 3200, she thinks since his kidneys are handling the treatment, it would be the safest thing to do. She told me she has had patients die from adenovirus, and since it was found in all of Jacob's systems, blood, urine, gi tract, and respiratory, she wants to give him as much protection as possible. Jacob also got some gcsf this week to boost his ANC, which has been slowly declining the past couple of weeks. Tuesday he got an ivig infusion and had his final review conference. Monday will be his last appointment here and then we will go home the following day.

He is a long way from having a functioning immune system, but he is stable enough to go home and continue treatment there.

We are so excited that you will be heading home! Wonderful news! It will be so nice to be together again as a family and help him continue to recover at home. We love you and are happy for your great news! -Sharolyn