FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Rare Revolution Magazine | RARE Round-up 🌍 | 11 October 2018

Rare Revolution Magazine | RARE Round-up 🌍 | 11 October 2018

RARE Weekly TOP TIP | Keeping safe this winter –

Seasonal Flu can be a big risk to our RARE community and to those who work in health care. The World Health Organisation (WHO) advise that all health care workers and people who are most at risk of developing serious complications from influenza infection be vaccinated every year before the season begins. Conversely for some conditions having the vaccine is not recommended, and so protecting those around you may be the best protection. Your can read a wealth of informationHERE, to help you and your GP make an informed choice this winter.

This will be featured in the Autumn edition of Rare Revolution later in the year.

RARE News – Manchester Medics go RARE

Last weekend, MUMPS – The Manchester University Medics’ Paediatrics Society, were delighted to present their conference entitled “A Spotlight on Rare Diseases”.

The Manchester University Medics’ Paediatrics Society are proud to be the first University Society to arrange a rare disease conference that is outside London.

The conference gave students interested in the field of peadriactrics an opportunity to see a key element of their future practises as well as rare diseases and the impact that they have on the patients and their families / carers.

Rare Revolution were proud sponsors and supporters of the event and their review of this rarity will be available in the Autumn issue of the magazine which comes out later in the year.

Our mailing address is:Westfield, Cushnie, Aberdeenshire, AB33 8LP

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FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and offering online support via our social media network across the globe.

PLEASE NOTE:We are not medical professionals nor claim to be, and remember that you should always consult your doctor about any health problems and not use Dr Google, or rely on information that you may read online through 3rd parties.

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

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ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Leibster Award Nomination

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Fight or Flight?

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Hello and thank you for reading our website and supporting us. FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers and we are striving to become registered as a community interest organisation. We provide health advice and support locally, nationally and across the globe to other chronic patients and to all stakeholders within the medical healthcare industry, AIMING to provide appropriate healthcare comminications and information to all. Our Chronic illness web portal is used by many across the globe and helps us to raise awareness and educate people about varying chronic illnesses and to provide resources for patients and professionals alike. We strive to be patient / health /research /pharma advocates and work tirelessely to better the end outcoomes for patients whilst promoting patient / person centred and multi-disciplinary approaches to medical healthcare. If you like the work that we do please can help us by donating to help us keep going and to raise the funds required to register our organisation. We thank you again for supporting us. All donations will be gratiously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

Disclaimer

That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links or any external parties.