Friday, May 28, 2010

My baby graduates June 8th. She is going to walk across the stage in her cap & gown. I’m going to cry like a baby. Yes, I am very happy she has made it this far. I guess it’s just the change has me thrown a little.

There are good things happening for her after she graduates. We found a good program for her and I found out that her sister, who is already her respite provider, can be her 1 on 1 aide for the new program because of Taylor’s health issues. That’s going to be so great.

I won’t have to worry about what is going on with her during the day. That’s always been the hardest part for me…Taylor transitioning from one school to another. When your child is non-verbal you have to learn to trust those teachers that you leave her with everyday.

I’ve only ever had one bad experience with a school and that was when Taylor was 10-11 years old. Her seizures had started to get really bad. After music class one day, Taylor just stopped walking. They said she didn’t cry, but just wouldn’t walk. No one called me at work. They sent Taylor home on the bus like normal. My oldest was watching Taylor then and she said something was wrong with Taylor’s leg. By the time I got home at 10pm, Taylor was crying and her foot was hugely swollen.

I rushed her to the ER and she had a broken leg! When I went to the school the next day to figure out what happened, they said…”well, we had Taylor being watched by an older (12 year old) DS child when it was music time and they said the girl told them that Taylor fell while doing the “Hokey Pokey”.

Seriously? You left my constantly seizing child in the care of another special needs child and no one saw what happened to her? Not to mention that earlier in the school year, I would go pick Taylor up from school and find her outside at the top of the slide…by herself!!! Hello? She has bad seizures….remember?

Okay, sorry. I made myself mad all over again just relaying that story. Anyway, fortunately, in all of Taylor’s school years, that was they only bad teachers so I count myself lucky.

I know what your desires and worries have been for a couple of years now with the thoughts of what would happen with Taylor after graduation. Remember the day that she walked??? Well, I believe that God definitely still has His hand on her and is still working miracles in her life. The program that you described couldn't be better especially since B can be her aid one on own!!!!

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About Me

I am the mother of a daughter with Trisomy 9p & Lennox-Gastaut seizure disorder. There is a lot to deal with when you have a special needs child & I thought it would be a good idea to share my travels here.