Australian Research Council (ARC)

Pure

Bond University’s institutional repository, Pure which displays research outputs in the Research Portal, can assist authors in complying with national and international funder policies by storing open access copies of their publications and ensuring they are open and discoverable.

Data sharing, ethics and consent

The sharing of personal and confidential research data must be done ethically. ANDS provides some guidelines on how the sharing of research data that relates to people can often be achieved using a combination of obtaining consent, anonymising data and regulating data access. The ANDS Guide to Ethics Consent and Data Sharing is available on the ANDS website. This Guide outlines practical steps to be taken by researchers who want to make their data available to others and by Human Research Ethics Committees who want to provide institutional support for the sharing of sensitive data.

Consent

When collecting data from individuals it's important to gain informed consent from the participants that explicitly tells them who may access the data and how the data will be shared during the course of the project and in the future.

Consent may be:

‘specific’: limited to the specific project under consideration;

‘extended’: given for the use of data or tissue in future research projects that are:

an extension of, or closely related to, the original project; or

in the same general area of research (for example, genealogical, ethnographical, epidemiological, or chronic illness research);

‘unspecified’: given for the use of data or tissue in any future research.