Welcome to PIMDA. PIMDA stands for profound intellectual and multiple disabilities Australia. PIMDA is Sheridan Forster's weblog about issues to do with people with profound intellectual and multiple disabilities (PIMD) in Australia. The purpose of PIMDA is to increase awareness of people with PIMD and the issues pertaining to this population. The other purpose of PIMDA is to build a network of interested people who can then work together to improve the lives of people with PIMD.

Friday, January 1, 2010

Paradigms and pragmatics

I'm busily working on my thesis. Read this quote, which I thought was worth sharing.“Although issues such as community-based supports, quality of life, and normalization remain equally important to nonambulatory persons with PMR [profound mental retardation], a failure to plan for their day-to-day needs can result in decreased access to appropriate health-care services, deterioration in functioning, and overreliance upon a group of poorly trained and isolate caregivers” - Kobe, F. H., Mulick, J. A., Rash, T. A., & Martin, J. (1994). Nonambulatory persons with profound mental retardation: Physical, developmental, and behavioral characteristics. Research in Developmental Disabilities, 15(6), 413-423. doi: 10.1016/0891-4222(94)90026-4

1 comment:

Yes, Most training packages don’t consider the communication needs of people with Profound Intellectual & Multiple Disability. Some concentrate on communication with colleagues, family and miss the basics of something as simple as tripe c.

What do you think the issues are?

About Me

I am a person interested in the lives of people with PIMD. I wear multiple hats including researcher, therapist, advocate, and friend.
I strongly believe that in order to continue to improve the lives of adults with PIMD we need to acknowledge the specfic issues related to this group of people. The first step in this is acknowledging that there are a group of people who have PIMD, and although they are all individuals there are some issues that they share in common.
I hope this weblog enables discussion of what some of these issues are.

Advocacy articles

Longley, S., & Collins, G. J. (1994). The development of a non-verbal satisfaction measure for use with people who have severe or profound learning disabilities. British Journal of Developmental Disabilities, XL(79), 143-149.

Hogg, J., Cavet, J., Lambe, L., & Smeddle, M. (2001). The use of 'Snoezelen' as multisensory stimulation with people with intellectual disabilities: a review of the research. Research in Developmental Disabilities, 22, 353-372.

Shapiro, M., Parush, S., Green, M., & Roth, D. (1997). The efficacy of the "Snoezelen" in the mangagement of children with mental retardation who exhibit maladaptive behaviours. British Journal of Developmental Disabilities, 43(2), 140-155.