Germany

The german organization is now 25 years old and leaded by parents. Our work is based on volunteersand so sometimes projects takes a lot of time to come to an end. We have about 500 family members and do every 3 years a big national conference (in 2014 about 580 participants).

Christina Leber

Christina is mother of two adult boys. Lukas (21years old) was diagnosed with Williams Syndrome when he was 3 years old. The german Williams Syndrome Association gave her a lot of help during the phase of searching for help and information. Since 2011 she is chair of this organization. She is glad to be the FEWS representative for germany. It is very interesting for her to see how other bigger and smaller, older and younger organizations are managing their goals and how different healthcare systems in foreign countries are.