I was talking to a friend, and I mentioned how I am usually so tired by 1 or 2 in the afternoon that I can hardly function- let alone cook, or do homework. My friend asked "can't you just go to bed and do it the next day?" and I got to use the spoon theory. (If I did it the next day, I'd have less energy left for everything else, and I'd get farther and farther behind)

Prior to this, she just hadn't got it at all. But now she does. She used to think that if I got tired, or ran out of energy, I should be able to rest and be better in an hour or so. She didn't get that when I'm done, I'm done and that's all there is to it. Anyway, she's now a whole lot more understanding of me and my lack of energy.

Everyday I wake up with 1 spoon.... the "get out of bed" spoon... Once I get out of bed, that's it... no more spoons, go back to bed - haha!

I'm glad your friend was able to "get it". I only have 2 friends who really get it. One has had 2 or 3 failed back surgeries and one has "chronic oain syndrome" due to multiple injuries over her lifetime. They're both on high dose pain management.Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has. - Margaret Meade

So far, I have managed to make it without having to take high dose pain meds. long term. I have had to go on short courses of them, but have then gotten mad & weaned myself off of them.

Like Jelaine - I have all too many days where I use up my spoons for the day getting out of bed to go to the bathroom & am ready for bed as soon as I'm done!!!

Honestly, though - I can't remember when I last woke up feeling any better rested than when I went to bed.It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients. - Traveler"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).