Pictures of my back, the psychological and physical pain of living with kyphosis

If this is your first visit, be sure to check out the FAQ by clicking the link above. You will have to register for an account before you can post.

Please note that the sign up process is moderated, so once you have provided email verification it may be a day or two before your account is validated by staff, although we will get to it as soon as we can.

If you are a parent, please use your own date of birth rather than that of your child so that the registration process doesn't get held up by us needing to ask you for further details :)

It is with a heavy heart that we tell you all that our dear staff member Tonibunny, who was with SSo from the start and was a good friend to many here, passed away Thursday night.

She was a wonderful friend to many members of the site. She readily shared all her knowledge and experience of scoliosis and was always willing to help and encourage anyone who reached out to her. When she wasn't sharing her experience of scoliosis, she shared her love of books, art, and music. She had a love of learning and life that was infectious.

Your correction is AMAZING&#33;&#33;&#33;&#33;&#33; Who did your surgery????

sealy, christine&#39;s surgery was done by Mr Harrison at the RNOH.

Diagnosed in March 2001 by family GP after my mum noticed an asymmetry in my spine. Referred to a consultant at the RNOH, Stanmore and started attending consultations for x-rays twice a year. Prescribed a TLSO brace to be worn 16 hours per day. Began with double major curves at approx 48 degrees. Offered surgery in 2003 aged 16 and declined to continue with school. Requested surgery in 2005 instead. Had T11-L3 fused on 16th July 2005 and haven't looked back! Released for all activities in March 2006, having been driving and riding horses with consultant's permission since 7 weeks post op.

Your brave for posting these pictures and I look up to a man that wants to help out to prevent such things to happen. Salut for that...

To me though Simon seems to know alot about a good Surgeon also an older man is here with severe Kyphoscoliosis and seems to do wonders with Schroth and has now a Kurbin Brace, so there are options for you to consider if you want to go that way... Good luck mate...

Going to the Docs on wednesday morning, hopefully get a referral to Mr Mike Gibson at the Freeman hospital in Newcastle, its only over the water and its the guy John first saw. I don&#39;t paticularly want to thave to travel all the Nottingham as its a pain to get to from this part of the country and John had good words to say about him.

John if you get to reaad this post can you drop me a pm or an e mail, thanks mate

Excellent, go for it Mark&#33; I just found out how good it feels to find a consultant who really wants to help - the sheer relief is amazing. I really hope that this guy can help you, I&#39;m sure that he will. Good luck PS you do know that you&#39;re gorgeous even if you have a wonky back, don&#39;t you? Love you xxxx

[SIZE="1"]37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.[/SIZE]

Originally posted by mark@Mar 11 2008, 07:55 AM I don&#39;t paticularly want to thave to travel all the Nottingham as its a pain to get to from this part of the country and John had good words to say about him.

I&#39;m sure you&#39;ll get a positive response from Mr Gibson, it sounds as though he comes well recommended. But - just in case you need a second opinion - don&#39;t forget Sheffield isn&#39;t TOO far away&#33;

[SIZE="1"]37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.[/SIZE]