I have had all major blood work done, 3 TMJ exams, 2 CT scans (with IV), 1 MRI (with IV) and a full panoramic x-ray as well as individual bitewing x-rays. I also had needed sinus surgery a month after symptoms began and a cyst and polyps were removed from my sinuses and my turbinates were opened up. The scans ruled out the sinus surgery as the cause for the continued symptoms.

No physical signs for random pains have been found. If I were to describe how my symptoms present themselves I would say this:

Imagine if I were to come over and stomp real hard on your foot and stand there for a few seconds (This would be the sharp shooting acute pain on any of the organs). Then in seconds sometimes minutes or hours later come back while your foot is still sore and stomp real hard on your foot again and stand there a few seconds before I step off. Its after these shooting pains, then I get this dull, sore and aching pain (This would be the chronic pain on any of the organs).

These random pains can occur any time and last for seconds to minutes even hours. Also, these pains occur on either the right or left side of my face. And lastly the pains will randomly occur to any of the organs I've described above. I've tried to induce the pains by either touch, hot/cold fluids or food, but cant cause the pains to happen.

I take 2 to 4 Lortab 7.5's a day and it sometimes helps, and sometimes it doesnt. One day I took 5 within a 4 hour period before I felt any relief. I prefer not take the pain killers at all, and sometimes I dont when I'd rather feel the pain than feel medicated.

The neurosurgeon prescribed Tegretol but the side effects were too much. Currently I'm on Neurontin 300mg 3 times a day. I will be seeing a new Neurologist next week at the University Hospital.

I would greatly appreciate any information regarding these multiple symptoms and how they relate to headaches, ear, neuropathology, pain management or any other condition. I cant find anything documenting these multiple symptoms anywhere.

Chances are if you have ruled out all possible medical conditions and diseases then it is due to tmj. If you stick with medical drs and still find no cause for the symptoms you may want to look into tmj specialists, neuromuscular dentists and alternative therapies. I did the same thing when I initially started having pain and spasms that were not limited to just my jaw but in my head, neck face, shoulders and throughout the rest of my body. I had the same problem with tegretol. Expand your search to include the accupuncture meridian, the fascia, chiropractor or upper cervical spine tmj therapy or facial, head and neck anatomy, Ernest syndrome, orormandibular or cervical dystonia, hemi-facial or myofacial spasms or pain, etc. You should be able to find both medical and holistic info that will help put the pieces of puzzle in place.

I know exactly what you mean about the ear pain. About 3 months after undergoing jaw surgery, I started getting that same pain. I saw an MD three times thinking I had a horrible ear infection and of course found out it was TMJ related. I started TMJ physical therapy and it helped a lot! Twice a week...eventually after starting a new job, I could not keep my appointments and now it is back. I am going to see a neuromuscular dentist next month, so hopefully it will help. It is very frustrating having that kind of random pain and the doctors can't find anything.