Tag Archives: hospitals

There are bigger, more globally grave stories in the news, but this one has gnawed away at me over all of them for the past four days: that of Ashya King, the five-year-old with an aggressive brain tumour whose parents, Brett and Naghmeh King, are currently under arrest in Spain after removing him from the Southampton hospital where he was being treated. I’ve attempted to engage in a dialogue about the heartbreaking story as it unfolded via social media, but keep encountering people who I’ll generously describe as fence-sitters.

My reaction to the facts as they keep emerging has generally been a visceral one: that of disbelief, empathy and anger. Anger that when the seemingly well-informed, well-prepared and determined parents of a sick boy remove him from hospital care in order to seek an alternative, less scattershot radiation treatment which is not freely available on the NHS except in very rare circumstances – a treatment they were willing to pay around £100,000 for – are criminalised for taking this step. The parents, and the most tech-savvy of Ashya’s six elder siblings, Naveed, seem entirely fluent in the power of social media, and have been posting regular YouTube videos explaining their position.

Although it’s ten minutes long – and what’s ten minutes compared to the life expectancy of a five-year-old with a tumour on his brain stem? – I have been urging people to view father Brett King’s key testimony, in which Ashya appears, apparently relaxed and well cared for in a hotel in Vélez-Málaga. (They’d taken him to Málaga – not “snatched” him, in the alarmist words of the first media reports – in order to sell a holiday apartment to raise the money to pay for “proton beam” treatment in the Czech Republic.)

Although, as the fence-sitters have been quick to point out, we cannot know the full, transcribed conversations that have taken place between the Kings and the oncologists at University Hospital Southampton, Brett makes a clear and non-hysterical case for why he and Ashya’s mother took the unusual step of removing him from hospital care. They used the Internet to research alternatives and the one they chose was not one based on crystals or cabbage soup but on conventional radiotherapy, which goes against what would have been the media’s preferred narrative: that the Kings were complementary medicine nutters.

That they are Jehovah’s Witnesses – a breakaway millenarian Christian branch that, by strict doctrine, refuses blood transfusion, or so I’ve read – was seized upon initially before the facts were known. It was during this cloudy period of speculation and kneejerk conclusion-jumping – a vacuum into which rolling 24-hours expands to fill – that the facts got away from us. But it seemed to me that reason was to some extent restored and hysteria averted by the first YouTube video.

Naveed subsequently posted this, to reassure those who would condemn his family’s decision that they did not make it lightly or without investing time, effort and money into ensuring Ashya’s normal feeding routine would not be interrupted.

In Madrid, which is 322 miles away from Málaga, where Ashya remains under armed police guard in a foreign hospital, Judge Ismeal Moreno ordered that his parents be held in custody for up to 72 hours while he studied medical reports and documents from the couple’s defence lawyer. Those who insist on blaming the parents will experience a weird sort of melancholic schadenfreude here – if they hadn’t “snatched” Ashya, they’d have been at his bedside in Southampton, instead of staring at the walls of separate cells in Madrid.

Again, although we can only know what we know, the family’s lawyer gave a statement denying that Ashya’s life had been at risk, and that he had been admitted to the hospital in Málaga “in a perfect state of health”. (Ashya’s brother Daniel, 23, was with him in hospital – thank heavens for small mercies in a case where very little has been shown, in my emotionally crazed and ill-informed opinion.)

There is still a chance that common sense will prevail and the family will be reunited after days of stress that none of them asked for. There was no “snatching”, there was “abandonment” (quite the opposite) and there has been no “neglect”, the flimsy basis of the arrest warrant and the threat of extradition. I asked aloud on Twitter when David Cameron would step in: he’s quick to get on the phone to Obama when the US needs our “military prowess” – why not a quick call to Spanish Prime Minister Mariano Rajoy? Nick Clegg has weighed in today, coincidentally after the Daily Mail made it a campaigning issue, although I fear one needs political and/or moral weight to make “weighing in” count. Cleggs boasts neither.

I hold no torch for the Mail‘s dirty tricks and grubby Victorian hypocrisy, but when it gets involved, politicians tend to be roused from their slumber. I’m no expert on the law, but isn’t extradition – an outcome that is on the table – basically about co-operation of governments? Though the Kings have refused extradition, surely some co-operation could resolve the matter before – and let’s not be coy – things deteriorate?

Unless Brett King is lying through his teeth, he was “threatened” with a “protection order” by the boy’s oncologist if he continued to push for the proton beam option and thus defy the child’s doctor – which would have meant (ironically) that he and Ashya’s mother would have been denied access to their son’s ward. That prospect seems to have driven them to act. They’d contacted the Prague clinic, but when the clinic contacted Southampton for the requisite X-rays and paperwork, the request was ignored. (Unless, again, Mr King is lying, or dressing up the facts. The fence-sitters will cling to this grey area until the story has been the subject of an independent review, I guess.)

Is it so wrong to air a gut reaction to a news story as it unfolds? I felt so sick about how quickly a child’s parents can be painted as neglectful, irresponsible criminals in a supposedly free society. Even if the hospital felt it was acting in the best interests of Ashya King, did it really have to call in Hampshire police so soon after discovering he had been removed? The first “breaking” media reports were of a “missing boy” who had been “snatched”. He was not missing. He had not been snatched. Assistant chief constable Chris Shead said in the police’s first statement on Friday: “It is vital that we find Ashya today. His health will deteriorate rapidly. Ashya is in a wheelchair and is fed through a tube. The feeding system is battery operated and that battery will run out today.” Clearly, at this stage, the police had no idea how well equipped the King family was, but no wonder the world acted with alarm.

I can totally understand Hampshire’s “damned if we did, damned if we didn’t” defence, but what I personally regard as a heavy-handed, panic-button reaction did not help matters, or contribute to the boy’s health. A European arrest warrant? Could they not have called the family to ascertain how much danger Ashya was in?

I’m not a parent. I will never be in the Kings’ position, thank God. But this didn’t stop me from feeling for them. Commentators have been saying, “It’s what any parent would do if they felt it was the best for their child.” I suspect the unconditional love for a son or daughter would trump all nuanced options, but I think the Kings should be applauded for taking such careful preparation before removing Ashya from care. (Naveed said that their mother was “by Ashya’s side for the whole month that he was in hospital.”)

I don’t pretend to have all the answers. But since we all hope that Ashya’s health will improve, by whichever treatment his guardians decree and pay for, at least there is some common ground. Without the Internet (and some of us can remember a prehistoric time before it), patients were in thrall to doctors for advice, and took it, without question. The dissemination of information, while wildly unpoliced across a once-super highway full of potholes, means access for all, even we plebs who do not have the luxury of a medical degree.

But a little knowledge can be a dangerous thing, and that works in both directions.