Thursday, February 26, 2009

I just spent 1 hr and 20 minutes with Dr. Glew, a Developmental Pediatrician. We talked about a lot. She seemed to be the most knowledgable person I've talked to yet. Every other doc has their specialty...but she works in the clinic that specializes in kids like our Eli, and is experienced in lots of areas.

After much discussion, I told her about the problems Eli has been having breathing. I say it looks like "apnea" while he's awake. Our pediatrician at home said, "in apnea they turn blue. These are just breath holding spells."

She said the "T" word.

Tracheostomy.

THAT IS THE ONE WORD THIS MOMMY NEVER WANTED TO EVEN HEAR!

I had a little melt down. I'm very sleep deprived and a little emotional. I feel like I cannot handle that if it were to come to that. I said, "What do we need to do to rule that out?" It's going to be her focus tomorrow. She is quite concerned.

Please pray that she is wrong.

Me and God are gonna get real close tonight. Won't you join me? Petition him on my son's behalf.
Please.
Eli needs prayer more than ever. I need prayer more than ever. I feel like I want to puke...

Eli Jansen - The Star of the Blog!

My handsome little "Bug". Completely addicted to Despicable Me! Finally gave up listening to Elmo (hooray!) and now listens to his movie! Very opinionated about his music. (He comes by that honestly - my husband and I are both music lovers.) He's my: Bronco-riding, Chain-Loving, Pom-Pom shaking, Best-Shopping-Buddy-Ever, and makes me laugh every day!!

Amy - Wife, Mom, Blogger

8 years into this journey, and I'm amazed at the things that have happened in my life because of Eli. He is an inspiration to so many, and his smile can make anyone feel better, immediately. I never imagined that my son would be so awesome. I am blessed!