National Haemophilia Council

About Us

Procedures / Responsibilities

The National Haemophilia Council will:

Liaise with the National Centre, regional treatment providers, Department of Health and Children, statutory authorities, and relevant national and international representative groups, as necessary, in order to fulfil its mandate.

Recommend that an appropriate quality management system is put in place and ensure that the National Centre commissions an appropriate and competent external audit of the National Centre for Hereditary Coagulation Disorders and other hospitals treating patients with haemophilia at least on a triennial basis.. The audit should include an assessment of the co-ordination of treatment and care between the National Centre for Hereditary Coagulation Disorders and other hospitals treating patients with haemophilia. The council shall receive results of each audit.

The results of the audit will be sent to the Minister for Health and Children, the Department of Health and Children, and the Chairperson of the relevant Health Board.

The Council will report to the Minister, the Department of Health and Children and the Chair of the relevant health board if the audit finds clear and serious, persistent, failure in the delivery of accepted practice in the delivery of haemophilia care of an appropriate and acceptable standard, the nature of the breach and the Council’s recommendations for addressing the problem.

Employ the necessary staff to ensure that Council’s mandate is carried out effectively and acquire suitable premises for this purpose.

Establish its own committees to carry out specific functions, or ask other committees or bodies to advise or assist the Council or to carry out specific work items on the Council’s behalf.

Publish an annual report not later than June of each year, and whatever other reports may be required from time to time.