The rare nature and profound daily challenges of EB make emotional support just as important. We want EB Nurse to be a place where people can connect with others who understand the physical, mental and emotional demands. A place where people can come to seek answers, find understanding, share wisdom and offer encouragement.

At the same time, we hope that EB Nurse can be a catalyst for something even greater. By working with other advocates, we hope to create awareness, raise money and support research that will lead to more effective treatment and, ultimately, a cure.

In the meantime, we are committed to do all that we can to ensure those affected by EB have the best quality of life possible.