Advocate for the ICD (International Disease Code) insurers need

Re-issuance of the Lymphedema Act

Thank you for your support!

What is Lipedema?

According to the National Institutes of Health (NIH), Lipedema is a disease, affecting mostly only women, of lipid metabolism marked by a bilateral and symmetrical swelling of the lower extremities caused by impairment of symmetrical fatty tissue distribution and storage combined with hyperplasia of individual fat cells. Lipedema usually is associated with a family history (hereditary).

Is there a cure?

Lipedma is a chronic disease. There is currently no known uniform medical procedure to cure lipedema, but the disease can be managed.

What can be done?

The NIH states that well-known therapies for lipedema include complex decongestive therapy (MLD Therapy), pneumatic compression, and diet modifications.

How does The Lipedema Queen help?

We assist women with lipedema purchase medical grade compression garments, nutritional supplements, treatments and WAL (Water Assisted Liposuction) surgeries. Insurance does not cover these items in most cases. Medical grade compression garment are much more costly than the average compression garment on the market. WAL surgery is at minimum $10,000 each and more than one surgery is needed.

Raising funds through hosting events that promote courage among women with lipedema, education and awareness, The Lipedema Queen 501(c)3 assists women with lipedema ease the financial burden that comes with this chronic disease.

The Lipedema Queen needs you to:

Donate to The Lipedema Queen

Take part in/support our events

Contact your Representative in Congress and your tell them to be courageous and sign on to Re-Introduce The Lymphedema Treatment Act

Thank you for your support!

Holidays with The Lipedema Queen

The Lipedema Queen realizes that another challenge women with lipedema face is finding beautiful clothing that fits. This is why the Avenue is one of our major supporters because they understand women with curves.

Also, we received a sizable donation of beautiful plus size clothing from a wonderful woman during the 2016 holiday season. We received sizes 3x-5x and a few pieces in size 6x. The Lipedema Queen Organization was able to ship out 10 boxes to women of the clothing from that donation. Additionally, we were able to help another 8 women in the local area to get clothing which was dropped off to them.

Below, are just a few of the women we were able to help....

"I just want to say think u to the Angel that donated the clothing to the organization"....(read more)

Lejoya Fields

Lejoya Fields

"Thank you, Katia Page, and to the woman who generously donated clothing"....(read more)