Thursday, March 26, 2015

limed

Lyme disease is often misdiagnosed as Chronic Fatigue Syndrome, Fibromyalgia, MS, Parkinson's, ALS, and more. I was misdiagnosed for several years. Both of my girls were treated and now are symptom free. It's so important to rule out Lyme with a specialist if you've received any of the above diagnoses. These pictures were part of the Lyme Disease Challenge and you may have seen ones like them going around lately.

My last appointment in DC went well. I'm making slow and steady progress with fewer seizures and we're trying to get down to the bottom of my energy issues. For this next two rounds of treatment we are trying new things to figure out if there are underlying causes and I've had lab work drawn once again to see if anything can be figured out besides "THIS IS LYME" and this disease is terrible. But really, in the end, one day, I will be my normal self again and that is the hope. And energy should be returned to its full strength to be considered normal in my book.

I'm still without joint pain which is wonderful! I'm so so thankful that the Lord has seen fit to keep that away. I may have kicked it for good. I think the best news from the appointment was that at the end of April I will get to have my line removed! Yipee :) Showers and jacuzzis and beaches and swimming are in my summer future! Just.in.time.

While things are looking up, life is still quite hard as it is difficult to function on very low energy reserves. So pray that the Lord would strengthen me and that the doctors would find answers as to how to remedy that. And as you can imagine, life doesn't stop when you have three children, especially small ones!

Lord, I'm drowning

In a sea of perplexity.

Waves of confusion

Crash over me.

I'm too weak

To shout for help.

Either quiet the waves

Or lift me above them--

It's too late

To learn to swim.

-Ruth Harms Calkin

But I continue to try to stay prepared daily for each "crisis" through prayer and through His Word, for only those things will get you through to the end. And I know He still is doing what He has planned for me even though it's hurting like heck.

"He knows the way I take; when He has tried me, I shall come forth as gold. My foot has held fast to His path; I have kept His way and not turned aside. I have not departed from the command of His lips; i have treasured the words of His mouth more than my necessary food. But he is unique and who can turn Him? And what His soul desires, that He does. He performs what is appointed for me." - Job 23:10-14

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How do you feel today?

I feel like one of those handy-dandy magnets you see on people's fridges that have 9 different faces looking back to you and depending on your mood you can put the little frame around "Happy" or "Silly" or "Angry". Only instead of moods, each day I decide varying degrees of physical feelings I am experiencing because of LYME DISEASE. For some reason blogging them helps.

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