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Little Charlie, who is 11 months old, was due to have his life support switched off last week after his mum and dad lost their long legal fight for treatment of his genetic condition mitochontrial depletion syndrome.

That means his brain, muscles and ability to breathe are all severely affected.

In Cleethorpes, mum Katie said: “This raises the question what rights do parents have? Connie and Chris have raised £1.3million so there will be no cost to the NHS or taxpayers.

“In April a High Court judge ruled the parents were to be stripped of their parental rights. They refused Charlie anymore treatment and will be removing his life support. As of last Friday Great Ormond Street Hospital has applied for another court hearing after discovering new evidence. this will be Charlie’s final hope to be sent to America for this new pioneering treatment. Lets all keep our fingers crossed. While Charlie is still fighting we are still fighting.”

She added: “This event was set up mainly to show that Grimsby and Cleethorpes are on their side (Charlie’s parents).”