About us

Myelopathy.org

Myelopathy.org is a non-profit organisation founded to raise awareness ofcervical spondylotic myelopathy [CSM] and support patients, carers and professionals who live and deal with it. ​

Our objectives are to

Provide an educational resource for patients, carers and professionals

Develop a support community for patients and carers

To become a catalyst for promoting advancements in care and management for patients with CSM

Dr Mark Kotter, Founder

Promoting understanding and awareness

Supporting patients, carers and professionals

Finding a cure for CSM

Mark is an academic Spine and Neurosurgeon at The University of Cambridge. His ambition is to advance the way CSM is treated based on a better understanding of the course of CSM, and by identifying the best care for patients. His translational research investigates the cellular and molecular mechanisms underlying CSM in order to develop novel therapies. (@KotterLab)

The Team

Dr Benjamin Davies

Director

Ben (MBChB. Hons BSc MRCS) is a NIHR trainee academic neurosurgeon at The University of Cambridge. He is co-founder of Myelopathy.org and has a research interest in myelopathy. His ambition is to accelerate the diagnosis of CSM and improve patient outcomes. ​

Iwan Sadler

Director Myelopathy Support

​Iwan is a CSMpatient turned activist. He initiated one of the first Facebook communities for CSM patients. In 2017 Myelopathy Support became the patient led support arm of Myelopathy.org.

Dr Michelle Starky

Research

Michelle (BSc, MSc, PhD) is a scientist with an interest in spinal cord injury. She has recently moved from Zurich, where she was developing devices to monitor rehabilitation, to join Mark Kotter's group at the University of Cambridge. Michelle oversees Myelopathy.org's involvement in and support clinical research.

Delphine Houghton

Public Relations

Delphine is also a CSM patient, with a professional background in Public Relations. She is putting her skills into service for Myelopathy.org

Board of Trustees

Join the journey

Although Myelopathy.org aims to be a reliable source of information, we cannot accept any responsibility for the information provided. We also do not assume any responsibility for the use or content of any product or service mentioned.Myelopathy.org is not responsible for any third party content referenced, displayed or linked to or on the Myelopathy.org internet site. The inclusion of any link does not imply endorsement by Myelopathy.org of the site. Use of any such linked website is at the user's own risk.