CF is a disorder which affects every organ in the body but primarily manifests itself in the lungs, causing a build-up of thick mucus.

Ms Longton said despite the hardships of living with the illness during the pandemic, she was not alone in the journey.

“Since I had my baby in January, once my family who was here from the UK left, Cystic Fibrosis WA provided me with a home care support worker,” she said.

“One of those things that I have to do every single day is intense physio and exercise.

“Last year, they provided me with a personal trainer to help me get my health and well-being on track.”

Ms Longton has been involved with CFWA for a number of years, including volunteering to sell roses in the city on 65 Roses Day.

The 65 Roses Day campaign aims to raise funds supporting research into CF which has no cure and affects nearly 4000 children and young adults living in Australia..

After 65 Roses Day took a turn due to coronavirus this year, CFWA has continued the campaign for people to buy a virtual rose.

For Ms Longton, the campaign serves to raise awareness of CF and the people who live with it.

“My hope is that there is more awareness of CF and the campaign so the funds can still be raised although there isn’t a face-to-face aspect,” she said.

“I hope it would reach even more people by being digital this year.”

The median age of death in Australia is 81.6 years of age but only 35.6 years for someone living with CF.

“My dreams were to move to Australia, which I’ve done, get married and start a family and at times that seemed like ‘will it actually ever happen?’, and ‘will my body be able to support that?’,” Ms Longton said.

“Just because you’ve got CF, it doesn’t stop you from achieving the things you want.”