I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.

Wednesday, January 28, 2009

Snow Day Again!!

I have no idea why these pictures are sideways, they are not that way in my camera. I tried to re-do it twice and it's not right... so just turn your head to view them:))Wyatt in his snowpants!

Well... it's another snow day with no nurses, parents, or husband. Just Wyatt, Chloe, and I. Wyatt is definitely getting out of the family room while it's just me around. He hangs out in my bed room while I take a shower, he plays in Chloe's room while she gets ready for the day, and comes outside to play in the snow!! I got out the jogging stroller, put on his snow pants (Chloe's snow pants from last year... they are brown, but don't tell Wyatt that they are pink inside:)) and put on all Chloe's gear.... 30 minutes later...we were all dressed and ready to play outside! I pushed Wyatt in the jogging stroller and pulled Chloe in the sled. Our driveway is all ice and my dog was barking at us... I am pretty sure it was a very funny site to see:))) We walked to Addy and Ben's house to play and their mom invited us inside for an impromptu play date. Wyatt had a great time playing with Ben and Chloe enjoyed playing with Addy, who is only 15 days younger than Chloe. They were both really tired when we got home because Wyatt fell asleep as I was changing his diaper and Chloe feel asleep right after lunch. They are sleeping now and even though I should be cleaning, I am blogging instead:)) I love snow days!!

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Wyatt at 3 Years Old

Wyatt at 4 months old

Blog Archive

Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.