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I'm blogging for awareness for chronic illness and those who live with it on a daily basis. I'm hoping to bring awareness for myself and to educate others with illness or loved ones of someone who is ill.

EDS Blog Challenege Day 11 When Did Dislocations Start to be a Problem?

I don’t remember entirely when I started to learn that
dislocations were a bad thing, it kind of happened in stages. They were painful
but I never really caught that they were bad for a long time, but that was
mainly because my mom dislocates some joints too. I thought that it just
happened to everyone regularly.

But I do know that it started to dawn on me more in middle
school, when I started staying the night with my friends. It was kind of when I
started learning about a lot of my symptoms honestly.Everyone else would have more energy than me,
and I would do stuff with them but I would have to take breaks. And on top of
that, that was when I started learning that staying up until four in the
morning wasn’t very commonplace either. Most of the time everyone else would
just be waking up for breakfast and I’d just be going to bed. And the others
would be able to eat so much food; I couldn’t even comprehend eating as much
food as they could. That was when I started getting teased and called anorexic,
but now we know that, that wasn’t true at all.

I started dislocating my shoulders very often when I was
maybe thirteen. And I could always dislocate my fingers on command too. I was
about fourteen when the pain started, which I now know as Fibromyalgia. That’s
when I started to tell my parents that something wasn’t right. Doctors couldn’t
find anything wrong with me, and my teenage years in total were filled with
more doctor appointments than anyone could shake a stick at.

That was when I knew dislocations were bad but I didn’t know
when they were bad. I started getting joint damage, but no one knew why and it
was really depressing. It wasn’t until much later after I graduated high school
that anyone started believing me. That I eventually ended up in a geneticists
office getting diagnosed with Hypermobile EDS.

Hi everyone, I'm Kali. I know there are many people out there with illnesses exactly like mine and they might be looking for answers or a little insight and I want to try to help them. I know when I was looking for people out there with similar illnesses it was hard to do. Mainly because a lot of people with chronic illnesses like to just keep to themselves. But I feel like if I put myself out there that's one more person that's a little more educated and understanding.