News 12, Toddler born with deformity gets life-changing surgery on LI

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EAST SETAUKET - A 2-year-old girl from Ecuador who was born with a rare facial deformity is undergoing life-changing surgery here on Long Island. Angie Barreto had a birth defect that left her very disfigured, and back in Ecuador, her family didn't think anything could be done. But Blanca's House, a nonprofit group that provides free medical care, brought Angie to Long Island for help.

Tres was born with Diprosopus, which is Greek for "Two Faces". He may look different on the outside, but Tres still likes to make friends just like most people.
Follow Tres on IG at https://www.instagram.com/diprosopusdiaries/.
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Violet Pietrok was born with a Tessier Cleft, a rare defect that left a fissure in her skull. Surgeons at Boston Children’s Hospital, aided by 3-D prints of her skull, hope to repair the damage.
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How surgeons at Riley Hospital for Children at IU Health are enabling Christian to achieve major milestones. Born with a rare facial defect--Tessier cleft--little Christian is one of only about 60 documented cases worldwide.

On February 26, 2002, twins Kendra and Maliyah Herrin were born sharing a large intestine, bladder, liver and a single kidney. When they were 4 years old, their parents made the difficult decision to separate the twins—never before had doctors performed surgery on conjoined twins sharing the same kidney. Five months later, in 2005, these healthy girls traveled to Chicago to meet Oprah. Today, the twins are 11 years old. Watch to find out how they're doing and why they're no longer the only twins in their family. For more on #WhereAreTheyNow, visit http://www.wherearetheynow.buzz
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Isaiah had gotten off the city bus and was crossing the road when he got hit by a truck. He was airlifted to Sunnybrook Health Sciences Center. As soon as he got there he had his spleen removed. He spent the next 3 weeks in a coma. He had many injuries that include Shattered cheekbone, fractured orbital bone, shattered gums, broken jaws, fractured ribs, punctured lung, broken arm and a severe TBI. The excellent team at Sunnybrook saved his life.
He spent the next 2 months recovering. Doctors did not give Isaiah very good odds. He was not moving his left side, talkin or even really communicating. He would give the thumbs up and thumbs down but it was not consistent. All he could really do was lay in bed.
He was sent to Holland Bloorview Kids Rehabilitation Center November 26th 2015 where I believe his true recovery started. The first day there he rolled over for the first time and by the end of that week he gave us his first smile. I could not praise the staff enough for how amazing they all were.
After Christmas it was like a spark happened with Isaiah. He said his first word December 28th and a week later he was speaking full sentences. He started moving his left side New Years Eve and a week later he was moving his own foot to take a step. He was a totally different kid.
He is a very strong and determined guy. He worked so hard and pushed through even on the painful days. My son is pretty incredible.
First song: Hallelujah by Imogen heap
Second song:
Life of Riley Kevin MacLeod (incompetech.com)
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A new dad with a severe facial disfigurement has defended his decision to have a baby daughter with the same condition.
Simon Moore, 30, who's also profoundly deaf, has always been bullied and would hide indoors to avoid the stares of strangers. His life changed when his hearing dog Foggy, introduced him to Vicky, 36, at a sign language class five years ago and the pair married in 2012. The wanted a family so started IVF and made the decision to keep baby Alice when tests showed she also had the condition known as Treacher Collins Syndrome (TC).
They had been offered a special IVF process which included state-of-the-art preimplantation genetic diagnosis to screen for the TC gene that Simon carried.
The treatment would search for and destroy any embryos that carried the faulty gene.

Sophia is a 9 year old girl who likes to make new friends. She is diagnosed with Rett syndrome and lives with a facial deformity. Sophia hopes others will understand that inside she is just like everyone else.
Follow Sophia's family on Twitter at https://twitter.com/Nataliew1020.
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