Welcome to Epilepsy Surgery Friends Website

Epilepsy is a condition that affects the brain and causes repeated seizures. Epilepsy is estimated to affect more than 500,000 people in the UK. This means that almost one in every 100 people has the condition. We are a network of friends who share experiences of surgery for epilepsy. Epilepsy Surgery Friends offers support along with talking
and sharing with those who have already experienced surgery.

Need Help - want somebody
to chat to.

.

Contact us - it could make all the difference. It may give you hope and be life changing.

We now run local groups
run by local volunteers.

Our Aim

Our aim is to support as many patients as possible who are offered this type of surgery to get through it as smoothly as possible. Members who have had this type of surgery share their experiences of it with those offered it to support them make the decision that's right for them. We ultimately would also like to offer our support in hospitals. We now also have our own funding page where members make donations created from their own fund raising initiatives.

Your not alone because we are here to support you.

Cause of Epilepsy

The cause of most cases of epilepsy is
unknown, although some people develop epilepsy as the result of
brain injury, stroke, brain tumors, infections of the brain, and
birth defects. Epileptic seizures are the result of excessive and
abnormal nerve cell activity in the cortex of the brain. The
diagnosis involves ruling out other conditions that might cause
similar symptoms such as fainting and determining if another
cause of seizures is present such as alcohol withdrawal or
electrolyte problems. This may be partly done by imaging the
brain and performing blood tests. Epilepsy can often be confirmed
with an electroencephalogram (EEG), but a normal test does not
rule out the condition.

What we can offer

If you or anyone you know suffers from epilepsy and have been told that you may be suitable to have surgery for it, you don’t have to go it alone because we are here to support you.
Our group can help you cope better and feel less isolated as you make new connections with others facing this difficult journey. Our support group shouldn't replace your standard medical care, but it can be a valuable resource to help you cope.

London - Children, Queen Square, USA, Wales, Bristol and South West
- children, Australia and New Zealand

Someone to chat to

So many of us who have been through epilepsy surgery all agree that finding suitable people to chat to who have had similar unique experiences is very hard to find. We hope through this website and Facebook page our community will support many sufferers and allow them to feel less isolated and closer to people who know exactly what they are going through and able to assist them through such a traumatic experience

We are here to
Support You

Don't delay -
Get in touch TODAY

You can help us

Support us while you shop
online via the easyfundraising site and a help us fund new
hospital equipment using GoFundMe link:.

Charlie Choppers Says

"This group is a great, supportive atmosphere, filled with experience and advice that you couldn't get elsewhere. I hope I can help some members, by drawing on my own experience of epilepsy surgery back in 2005. Thanks for putting this together, it will offer more support and guidance than ever deemed possible."

What other people have said about this group:

I need to thank you for all the support you give by creating and running the support group.