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leecat41

I was first diagnosed in 2004 due to having so many of the symptoms. But with a negative ANA test, was un-diagnosed. This has continued since then. I now believe that I've had flares from time to time but have never been tested during those times (I'm hard headed and am just now beginning to understand this thing) I was so frustrated at all the different opinions that I eventually stopped going to the rheumy all together. But since I've found this site, I've gotten more understanding of this disease and realize that my rheumy was only doing what he thought best. He's been treating me for lupus and now I know that, even though it's rare, you can have lupus with a negative ANA.

I have numbness on both of my calves and now other parts of my body. Have been diagnosed with a couple different neuropathies. They had me on Gabapentin for a while but made me sick so now I'm on a higher dose of Lyrica. I don't have any ringing in my ears but do have a lot of fog and dizziness.View Thread

To do what is right is not always easy, to do what is easy is not always right.

Thanks all. The drs have said that they don't know why. I'm on lasics for the swelling. my rheumy says that lupus doesn't make you swell. I can't take anything with cinnamon because I'm allergic to it. I took myself off the hydroxychloriquin but am still swelling. I'm really about ready to give up. We don't have many drs to chose from around here and the ones that we have don't understand much about it.View Thread

To do what is right is not always easy, to do what is easy is not always right.

Ok, my doctor just said that my Raynaud's is progressing. He said that we are going to begin treatment for it after the 1st. I didn't know there was a treatment? What is is and what do they do?View Thread

To do what is right is not always easy, to do what is easy is not always right.

I've been diagnosed and undiagnosed with Lupus since 2004 and still don't have a firm diagnosis because I haven't had a positive ANA yet. My rheumatologist starting treating me for lupus suspect and has since changed his mind since. I will keep trying until I find out what all is going on with me. Don't give up!View Thread

To do what is right is not always easy, to do what is easy is not always right.

it is a long road but do not give up. I know that it's very frustrating. I took myself off all the meds they started me on because I didn't see results either. Now, I'm paying for it. Hang in there! Know that you are not alone!View Thread

To do what is right is not always easy, to do what is easy is not always right.

Does anyone here have problem with places going number? I have spots that feel numb to the touch but if you hit them just right they send a searing pain. Is this part of the neuropathy that I have? Should these places be getting larger?View Thread

To do what is right is not always easy, to do what is easy is not always right.

Women's Health Newsletter

WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,at work, or with familyand friends.

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