"For as high as the heavens are above the earth, so great is His love for those who fear Him; as far as the east is from the west, so far has He removed our transgressions from us." Psalm 103:11-12

Thursday, February 9, 2012

alive and kickin'

Has it really been T.H.A.T. long since I last posted?

I thought I should come up for air!

and write a quick post.

We have been waiting to hear back from Jackson's visit with the craniofacial team 2 weeks ago to find out why he is not talking like he should be able to at this point.

We are hoping to have the final report tomorrow.

The first information we received from the Speech Language Clinician was that we needed to be tougher on him.

It broke my heart.

He's stubborn.

Not to mention S.T.R.O.N.G. W.I.L.L.E.D.!

But oh so loveable and snuggleble (is that a word?)

The last thing the pediatrician told us before we left was that the SLP was thinking that he might have Neurological Apraxia. Which I guess is also call Childhood Apraxia of Speech.

This isn't anything that we've been told as a definite thing.

Apraxia, from what we've read, is when someone knows exactly what they want to say, but the neurological processes that must occur to make it happen don't occur. This could be because of low muscle tone, motor coordination, synapses not firing, etc.

Jackson DEFINITELY knows what he wants to say!

and boy, he has ALOT to say!

but it just.doesn't.come.out (so that we can understand it)

Our SLP at school and his other teachers are thinking that it is more along the lines of Velopharyngeal Insufficiency. Which is determined through scoping and other methods. (with Apraxia as secondary)

Our purpose in going to see the craniofacial team was so that this could be completed.

It wasn't!

We mentioned it to each doctor that came into the room.

Doctors can be frustrating.

We are hoping to be able to update the blog tomorrow with a definite prognosis and a plan!

But on the brighter side...

These are the words and phrases that we can understand when Jackson says them:

1 comment:

Hi Stacy! I'm Jen from Brazenlilly and I just got your comment. I would love for you to see pics of our little guy! The password is "bunch" all lower case. I'd love to connect with you more about your little Thai babe! Are you on facebook? we have an invite-only group of Thai adopt mamas that has been really great support. If you wanna email me at brazenlilly@gmail.com, I can give you my FB contact info (or vice versa) and we'd love to include you! Which agency are you using? Best of luck and CUTE kiddos you have!

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