The page : http://www.reddit.com/r/ehlersdanlos/This has just started so there aren't ton of people.. Reddit is a site that seems to be getting more and more users as the quality of similar sites has gone down.

Here is a link as well, you can vote for the EDS subreddit to get a specific logo for their category, if you wish to support this community or give it a chance,setting up an account and voting for this issue would be helpful http://www.reddit.com/r/redditlogos/com ... ersdanlos/ : )

The site works very nicely for other issues that are difficult to discuss online, so I see potential.For those who don't know, it is a message board site that allows subcategories using the format reddit.com/r/NameOfCategoryIt allows users to post pictures,links,questions,etc. Based on the quality of the post, it gets voted up or down. It allows a discussion of the material,message,or question people have posted,and one can vote up or down for these responses.You can also PM specific users. It seems to be a mix of different people on it, and allows for a large variety of different topics.

It allows for creative categories like AMA(ask me anything) or IAmA for user to describe what makes them special(profession,skill,experience,hobby,etc) and allow questions from the community.