I have written a book on the politics of autism policy. Building on this research, this blog offers insights, analysis, and facts about recent events. If you have advice, tips, or comments, please get in touch with me at jpitney@cmc.edu

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Monday, February 7, 2011

Help After Childhood

Many teenagers with autism stop receiving speech therapy and other needed mental and physical health care services once they leave high school, according to a new study. Graduating seniors lose access to the services they obtained through their school-based special education programs.

The loss is problematic because the need for those programs doesn't go away, said study researcher Paul Shattuck, of Washington University in St. Louis.

...

Shattuck and his colleagues analyzed data from questionnaires given to parents and guardians of young adults (ages 19 to 23) with autism. More than 400 parents and guardians answered questions about their children's use of four types of services after high school — mental health services, medical services, speech therapy and case management — or about the coordination of the patients' care.

The researchers found the rates of use of these services all had fallen since the students were surveyed six years earlier. Most notably, the number of students receiving speech therapy dropped from close to 75 percent to 9.1 percent. While these two estimates are not directly comparable because some of the participants discontinued the study during those six years, the results still showed a steep decline in use of services, the researchers said.

About 39 percent of the young adults did not receive any special services after high school. Teens in this group were more likely to be black and from families with low incomes.

The drop in speech therapy use may be due to cost — after students graduate, health insurance disability programs usually don't cover it, Shattuck said.

"One of the services they need the most is the one service that is essentially excluded by way of eligibility and reimbursement policies," Shattuck said.