CHANGE OF VENUEDue to an abundance of RSVP’s for the Kansas City FSHD Family Day, we have changed the venue to accommodate everyone! Please see below for updated directions to GRID Collaborative Workspace and suggested hotels.Click here for the updated flyer.

Co-organized with Jeffrey Statland, MD, and his team at the University of Kansas Medical Center (KUMC), this meeting will update you on research ongoing at KUMC as well as from other leading FSHD centers. Guest speakers include Rabi Tawi, MD, from the University of Rochester and Scott Harper, PhD, from Ohio State. Experts in physical and occupational therapy, orthotics, and mobility aids will also be on hand to answer your questions. Click here to view the agenda.

If you have already RSVP’d with Kiley Sims at KUMC, you don’t need to register again. Otherwise, please complete the registration form below. Deadline is October 22.

Directions:

From 435 E – Use right lane to take exit 81 for US-69 N/US-69 S
Use right lane to keep right at fork and follow signs for I-69 S/College Boulevard
Keep right and continue towards W 119th St
Keep right, follow signs for 119th St to 12022 Blue Valley Parkway