Monday, April 21, 2008

Isaac is still blind. But, the glasses do help his eyes stay "centered"...so, I had to order new lenses. Which, are $189. But, they are going to ask the lab if I can get a free set under the warranty since we've only had them less than 2 months... (that would be AWESOME!). I asked the doc how I was suppose to keep the glasses on his head and out of his mouth....she told me to put "no nos" on his arms! Is she kidding me? Could you see Isaac sitting in his bouncy seat, glasses on, no no's on, trying to put his paci in his mouth, trying to put his glasses in his mouth....and then just looking at me in disbelief and screaming!~ I'll have to think of something else!

We see pulmonology tomorrow. Maybe they'll tell me something that I don't already know about his O2 requirements...or just reassure me that his body has been through a lot this year....and this is only temporary.

Chris and Eli are alive and well...working hard at school and hard on my nerves.

Joe...something has taken over his body...he has been the sweetest thing this weekend. Three days in a row...I'm in HEAVEN!

Me..,my snot is clearing out...my house is still messy, I did make dinner tonight (although the big boys only wanted Kraft Macaroni and cheese)....and I am tired. We're heading up to bed soon....so, ta ta for now!

Just me peeking in on how things are going in your neck of the woods. :) I want you to know that I've been thinking of Isaac and remembering his heart cath this week. I hope he's able to get it done and over with without having to re-schedule (we know what a pain that is! ha!)

I also wanted to tell you what a sweetheart you've been....always keeping up with us and leaving us wonderful notes that always make me smile. I sure hope you're feeling better soon...and able to keep up with your very busy schedule!

Give that little sweet potato of yours a big smooch from us! I hope he starts keeping those adorable glasses out of his mouth!!! :)

I'm so glad to hear your hubby is being so sweet! That makes life so much better. And everything will go GREAT on Thursday, I can feel it. I know it stinks handing your baby over for anything, but it will be GOOD. You'll get some answers and can get rid of some worries. It'll be great!

Thanks for calling yesterday. You do have the world's cutest southern accent. I want it! I need Kathy Accent lessons. :)

I am going to have to agree with everyone on the whole glasses thing! I sure hope you get a free pair! Jacob snapped Steph's glasses a couple months after she got them and hers were covered by warranty so hopefully these will be too!

Saying big prayers that Isaac's appts go well this week.

And...I'm so glad you're feeling better and that Joe is being "super husband"! You deserve it!

Isaac

About Isaac

This is the blog following the adventures of Isaac, our third son. He was born (3/28/07) with Severe Tetralogy of Fallot, Pulmonary Atresia, VSD, Major Aortopulmonary Collaterals, Right Aortic Arch, DiGeorge Syndrome, and Cleft Soft Palate. We appreciate all of the support we have received from our friends and family and welcome you into our hearts and lives as we continue on this journey.

As of Nov. 2009, he's FINALLY sitting up and crawling!! He's such a quiet little man...no babbles yet...but, when he starts talking...I'm sure he'll never stop! He's solely g-tube fed, but has started 1-2 jars of baby food a day (it might take a while...but, he'll learn to LOVE food like his mom and dad!) His favorite thing is "Yo Gabba Gabba"...he's glued to that show ALL DAY, EVERYDAY

To date he's had....1 stomach surgery, 2 open heart surgeries, 6 heart caths, and 1 cleft palate repair (where they also did a little work to his tongue and released some webbing on the inside of his cheeks).

Chris

Chris....was born on September 9, 1994. He was the only child for 8 years before we had Eli (see a pattern here...I need a break between kiddos!). Chris has been home-schooled from 3rd grade-7th grade...and now he's back in public schools in the 10th grade...and I'm proud to say that he's on the A/B honor roll!!! He's currently trying out for the wrestling team and goes to Boy Scouts. He likes video games...and that's about it. Chris is ready to start driving a car, get a job, and go to college (I'm not sure why he wants to grow up so fast!). He has such ambition and loves to share...and THANK GOODNESS he doesn't have a girlfriend yet (my nerves couldn't take it)!!

Elias

Eli...was born on June 13, 2002. He was our baby for 5 years before we had Isaac....so, he's getting use to being the little brother of Chris and the big brother of Isaac. He loves Star Wars, Hilary Duff, and Thomas the Train (not necessarily in that order!). He's currently a 2nd grader and loving school (where he LOVES to read!). He has such a tender heart and feels compassion for everyone...but, also is a tattle-tale much of the time!