My husband was diagnosed with ALS on 11/20/2013.
Wife, best friend, partner in crime, side kick and now... caregiver. This is my side of the story.

Wednesday, April 6, 2016

Just a moment of normal

Last night, around 3 a.m., Ed was in his wheelchair, restless, itchy awake. He sleeps in his chair now. He's in his chair all the time. I woke up to rub his arms, scratch his ears, massage his shoulders.

He laid his head on my chest, which he never does. I don't know why, I only know it felt odd. I kept rubbing his skinny shoulders; he fell in to a soft sleep. He woke up and said stop. Just let me stay here like this for a little while.

I forgot what it's like to just stop for a minute and actually comfort my husband without it feeling like I was duty bound. A bitter, frustrated, overworked nurse.

In the dark, his head on my chest, my hands resting on his shoulders, it was nice.