There is a proposed study looking into brain development or changes (plasticity) in patients with KS / CHH and to see if there are any changes related to hormone therapy when compared to a control group.

It is a 2 hour test which would involve a MRI, smell test and a interview. They are looking for both male and female patients.

Apparently they will pay expenses and accommodation to visit the treatment centre in Belgium.

I think they are after European patients mainly but there is no harm in contacting them for more information if you are interested.