Our journey in the Autism Spectrum

Posts tagged ‘painful’

I’m trying to be understanding. Compassionate. Really, I am. But son of a bitch! Henry’s anxiety seems so irrational, ridiculous even, these past several months! I feel horribly guilty about this. More often than not, I am so.tired.of.it! I lose my patience. A lot. I get anxiety about his anxiety. Just STOP it already!!!

Ok, bug phobia, sure. I get it. We’re working on it. Five years of working on it but still, fine. Whatever. Waking up at night with panic attacks is a little bit trying. Sometimes more than a little bit; Henry waking up out of a dead sleep (because we do check on him and KNOW he is, in fact, sleeping!) saying he can’t sleep and crying and whining and screeching, unable to tell us WHY or WHAT is causing him such distress. We try to calm him down. He tries to calm himself down. We remind him of relaxation exercises he can do. He has a few YouTube videos that he can go to as well. We’ve been to a psychologist to help us through this. It was getting better. Now it’s not better. Almost-every-night not better. He NEEDS to wear one of his dad’s hats to bed. He MUST have one of my pillows or stuffed animals to sleep with. (Yes, I have a stuffed rainbow chameleon. Don’t judge.) We allow him these things, of course. It does help. Sometimes. After what feels like hours of trying to talk him off a ledge.

The “newest” anxiety revolves around waiting for the bus. For all of his school bus riding life, Henry has always had trouble dealing with the waiting for the bus, the worrying about missing the bus or the bus being late. We’ve had complete meltdowns in our driveway over this. Did I mention the bus stop IS our driveway? This school year he seems to be adding another layer to his worry. This year he not only wants to go outside and wait for the bus 15-20 minutes earlier than he needs to be, but he doesn’t want to go out and wait alone. On our porch. With the front door open where Lucy sits on the couch and they can see each other. He wants one of us out there with him. Why? Because he’s afraid of flying bugs and now BIRDS. But, you know, he can’t wait inside because he doesn’t want to miss the bus!!!! Good gods, please give me strength!

This morning, as I finally aquiesced to sitting in the front room with the door open so we could see each other. (Since Lucy had an early morning activity and was already at school) I listened to him and watched him for 10 minutes, talking out loud to himself and pacing, pacing, pacing. Repeating over and over, “I’m okay. I’m okay. I’m okay.” All the while walking back and forth on the porch ducking from and swatting at invisible bugs and birds. Now, lest you think I’m so cruel as to sit inside and watch my son suffer through this, please know that he will STILL exhibit these behaviors whether or not Lucy or I are outside with him. This morning I just could not bring myself to sit out there. Sitting inside I can still watch him but look away, distract myself from his physical actions and verbalization. Sitting outside with him, his anxiety just gets on my last nerve. I’m not a morning person and I’ve barely had one cup of coffee before it’s time for the bus. And his anxiety gives me anxiety. Like there is a weight on my chest that I just can’t get rid of.

Perhaps it’s time to go back to the psychologist. I kind of dread that. It’s out-of-pocket until our deductible is met. That sounds terrible, doesn’t it? I mean, I should put a price on my son’s mental health? Still, it’s something we need to consider. More than the money, of course, I am most worried about anxiety meds being suggested. Again. I was really hoping we could get through this with some behavioral techniques and learned coping skills. Meds can be such a slippery slope…though, maybe he needs that. I don’t want him to suffer but I know sometimes adding medicines can add to problems with side effects, etc.

Ultimately we will do whatever we need to do to help Henry. To help him be the best that he can be. But this morning, well, this morning was downright painful and annoying and I just couldn’t deal. I’m trying so hard. Every day I want to help him so badly and I wish more than anything he didn’t have these anxious feelings. Some days though, I’m just tired of it.

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This last part of the school year has been a bit challenging for our little dude. We are getting some notes coming home in his daily binder; “rough day”, “agitated”, “did not want to work with classmates in group”, “impatient”, “not waiting his turn”, etc. It’s the end of the school year and Henry is having a hard time holding it together some days. This is not surprising to me for a kid with an autism diagnosis. We work daily in the area of his social/emotional challenges. Always. Still.

Last week I had gotten a note and a call from the principal’s office that Henry was bothering some girls on the playground and he reached out and grabbed one of them by the shirt. This week a note came home, “arguing today”. Henry doesn’t like to get into trouble. And he really doesn’t like to talk about it when he does get into it. You can almost see how physically painful it is for him to admit he is wrong or to apologize for something. We have been working VERY hard on how to handle this in an acceptable manner. He wants to play with the other kids sometimes but he just doesn’t know how. Nor does he get those social cues when the kids don’t want to play with him or play his way. Another not-so-surprising aspect of his autism diagnosis. This is his most challenging area for sure! I was wondering if this most recent note had something to do with the playground issue from last week. I worry a great deal about what these social challenges might mean for Henry as he grows up. For how long will these challenges be oh-so-challenging for him? Will he ever learn how to navigate these waters appropriately? Will the kids ever understand and accept him for who he is?

When I questioned Henry about who he was arguing with I got the typical first response I usually get from him, “I don’t want to talk about it!” He had just come home from school which is a rough time of day anyway. Fine. Let him decompress.

In continuing with our vigilance in using everything as a possible teachable moment, later that night before bed when all was quieting down, I asked him again who he was arguing with. “Mrs. Q.” (This is his SSD resource teacher that he adores so I was beginning to worry what this was all about.)

“Why were you arguing with Mrs. Q?”

“I don’t know, Mom. Sometimes it seems like I just can’t help it.”

Fair enough. Not that this is acceptable, mind you, but at least he was thinking about it and talking about it calmly with me.

“Well,” I said, “don’t you think you should apologize to Mrs. Q for your behavior?”

“Yeah.”

“Okay, good. So when do you see her next?”

“I see her every day, Mom.” he told me in his “duh!” tone.

“Okay, so the next time you are with her you should apologize and try to work harder at not arguing with her. Alright?”

“Yeah, okay.”

I didn’t say anymore about it after that until he got home from school the next day. “Hey, dude, did you talk with Mrs. Q?”

“Yes, and I said I was sorry and I will try to be better.” (I don’t know if he actually did apologize to her but for now I am giving him the benefit of the doubt.) I figured this was the end of it at this point and we let it go.

However, this morning while the little ones were eating breakfast and I was getting clothes ready for the day, Henry came to me and said, “Mom, you know how I told you I apologized to Mrs. Q?”

Uh oh…”Yes, I remember.”

“Weeeellllllllll, I also apologized to the girls I was bothering the other day.” And with a big grin on his face he said, “And they accepted!”

ummmm….wow! Now, I don’t know if there was any adult intervention or whether he did this on his own but still, big. huge. wow.

“Oh, dude! That is really great! I am so proud of you! Great job!” But, again, as we continually try to practice and remind and practice more, I couldn’t help adding, “So now that you said you were sorry for that, you will try hard and not bother them anymore, right?” While he is getting better at saying he is sorry, he still has a hard time stopping some of the behaviors.

“Right. But can I play with them?”

“Of course! But you need to asked them if you can play with them first. And if they say no, then you need to leave them alone, okay?”

“Yeah. But then can I still wave to them and say hi?”

Oh my sweet little dude! “Yes! That would be very nice of you!”

I realize that Henry’s classmates will never really understand how hard all of this social interaction is for him. But today, I feel we are one more step closer to acceptance!