Hey OP, this sounds like a nightmare but I hope your situation keeps improving and you're one day able to live a normal life. I definitely take the fact that I can doze off for eight hours like it's nothing for granted.

Hey man this sounds serious... your body needs sleep to function and heal itself. Sleep deprivation is a huge reducer to life span, as shown by studies about people working graveyard shifts. Have you told the doctor(s) about how much ambient you have to take to sleep? And how little you sleep for weeks when off it? I wonder how they would recommend that you detox.