My chronic illness journey is lengthy story. I began seeking help for all my whackamole symptoms from the Healthcare System in 1999. My progressive deterioration took 17 years before the culprit received an official name. I was diagnosed with Ehlers-Danlos Syndrome by my primary care physician in January 2016. This finding was corroborated in May 2016 by… Read More Chronic Illness #TBT: Undiagnosed EDS Health Crisis Story

OnlyinthisHead.com

Welcome to Only in this Head: Chronic Illness Life with Ehlers-Danlos Syndrome! This informational website is designed to help others along the journey of chronic illness with Ehlers-Danlos Syndrome and it's associated conditions. My hope is by sharing my own story, I can help others find their way to diagnosis and to living a life of peaceful harmony within incurable and misunderstood disease processes, like my own. My chronic illness journey to diagnosis is a tale encompassing 30 some years since my first symptoms of Ehlers-Danlos Syndrome appeared and when I was finally diagnosed EDS official in 2016. While no longer able to practice as a nurse, I still aspire to help others through sharing my experiences as I navigate life with multiple chronic illnesses and a desire to understand the greater meaning of it all.