NTSAD Care Tips Series

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Last Updated: Friday, 01 December 2017 17:04

The goal of this series is to document and capture information that relates to the family experience in all its forms (caring for a child, grief, living with the adult onset forms) and the symptom and care management involved. These videos allow families, supporters and healthcare professionals worldwide to have access to information that may not be readily available to them in their area. An imperative goal of this series is to relieve the isolation brought on by these rare diseases.