A journey of life with Deafness,Cochlear Implants and a mitochondrial condtion.

Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

26 August 2009

Recovering and Article...

I have just got back from the doc's because of that wheeze in my chest. The doc told me that it should get better in time and I need lots of rest and I will be back to my normal self in no time!

Apart from coughing up all the time which is making my PEG area so sore. :( we got cream from the doc for it but I can't use it til Friday til the nurse shows us how to use it! Every time i cough, it seems to hurt my PEG area but I can't stop coughting... I also have the blood test to see if my liver function has gone back to normal from my time in hospital. I hope its back to normal!

On a good note, the article about my 15 yrs as a cochlear implantee has come up in the magazine "here and now"

here is the link if anyone would like to read it. HERE AND NOW page 16.