Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes. The National Institutes of Health estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide.

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The team at EDSers United hosts the NJ Community Support Program in New Brunswick NJ. Special thanks to the RWJ Health and Wellness Center for housing our programs. All affected/suspected of being affected by Rare Genetic Conditions, friends and family are welcome to RSVP their attendance online or with a quick text to 201-702-4075.

Next NJ Community Support Program Date

January 22, 2017

Highlights from EUF

We are a nonprofit public charity organization dedicated to serving the rare disease community, specifically those affected by rare genetic conditions. We are currently focused on establishing the Wellness Institute for Rare Conditions (W.I.R.C.). This state of the art facility will specialize in diagnosing, treating, and managing rare genetic conditions. If you want to be a part of this great project that will not only improve the lives of so many people currently struggling in the rare disease community, but will also establish ground breaking rare disease research, pledge your support today.