Stiff skin syndrome is a condition in which the skin hardens and makes it difficult to move. The condition has even caused Jaiden some difficulty breathing.

Dr. Lisa Swanson, Jaiden’s dermatologist, said there is currently no cure for the disease, but that there is generally a “stopping point.” But that stopping point is different in every case.

Unfortunately, Jaiden has yet to hit his stopping point. His doctors have reportedly never seen such an aggressive spread of the condition. Natalie says that she is just fighting to keep his quality of life up.

“It makes me frustrated, and yes, you get angry, and I cry a lot,” she said. “I spend a lot of time on the Internet every day trying to figure out what my next step is.”

For now, while doctors continue to figure out how to help Jaiden, he continues to be a fairly normal 10-year-old boy. His mother says he loves Star Wars, the Denver Broncos and watching funny videos of horses online.

The family has created a YouCaring page to help raise funds to help get Jaiden a service dog, make their entire home wheelchair accessible, and continue treatment through chemotherapy and other methods.