This talk was presented as part of the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA. You can also view the workshop introduction by Dr. Fatma Dedeoglu.

Watch the video or read the transcript below. Also, take a look at other videos from this workshop.

The transcript has been edited for clarity.

Dr. Jonathan Hausmann:

Thank you for that talk. I just wanted to talk a little bit about how I became interested in autoinflammatory diseases. This was a few years ago, I was at a Passover Seder with my family and there was a distant uncle that I’ve never met before. He was a dermatologist and he was working on a book about these weird autoinflammatory diseases. That was my first year as a rheumatology fellow in pediatrics and he was looking for somebody to write a chapter about pediatric autoinflammatory diseases. Continue reading A brief history of autoinflammatory diseases→

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Dr. Fatma Dedeoglu, Boston Children’s Hospital, introduces the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA.

Watch the video or read the transcript below. Also, take a look at other videos from this workshop.

The transcript has been edited for clarity.

Dr. Fatma Dedeoglu: Good morning and welcome. I really appreciate all of you showing up here today on a gorgeous Saturday. I’m sure you could have done many other things but I really appreciate you coming.

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Growing up in Venezuela, I really wanted to be a writer. I loved writing short stories with fictional characters named Petunia who overcame challenges and provided a moral in the end. I remember writing one story in which one of the characters tragically dies. My mom (a psychotherapist) thought it reflected a hidden trauma and sent me to one of her colleagues for evaluation. Fortunately, the therapist concluded (correctly, if I may add) that I was just being creative.

At the time, it never crossed my mind to become a doctor. This sentiment persisted through adolescence; when discussing my future in my college application essay, I stated: “I do not want to become a doctor or a lawyer.” And yet they still accepted me!Continue reading This is how I write science papers→

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We are holding our first (annual?) Managing Your Autoinflammatory Disease: Lifestyle and Wellness Workshop on Saturday, April 28 in Waltham, MA. The workshop is open to children and adults, and it is free to attend!

The purpose of the workshop is to explore various methods to manage your autoinflammatory disease. While every autoinflammatory disease is different, they share many commonalities about how they affect the health and well-being of patients and their families. As such, this workshop will address the psychosocial aspects of managing autoinflammatory diseases, especially in empowering patients and families to better manage their condition.

We will have discussions with Rheumatologists, psychologists, parents, patients, reiki masters, art therapists, physical therapists, and yoga practitioners about using various techniques that may improve wellness, even in the setting of autoinflammatory disease. We will also hold roundtable discussions with patients and their families to share tips, wisdom, and life advice.

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With our old dishwasher, we never knew whether the dishes in the washer had been cleaned. Before putting the dishes in the washer, we had to scrub them well, otherwise, they’d come out almost as dirty as they had been when we put them in. At the same time, the dishwasher would do such a poor job washing the dishes that, even after a cycle, they were never really clean (just ask a few of our guests who often left their glasses of water—or wine!—untouched). So, with the dishwasher full, we never knew whether we should turn it on to clean the dishes or place the dishes in our cupboard. Continue reading The Dishwasher Dilemma→