Alright!—Disabled radicals who know how to R-O-C-K! They wheeled to the Whitehouse from all over the U.S. on a mission—Approximately 400 of them! After almost thirty years since the first International Year of the Disabled, as a threatened minority, we still aren’t really on the map yet. Of course, it’s hard to acheive when you have ol’ fart opportunists like Jesse Jackson, Al Sharpton and Charles Rangel pulling off what they did over the Jena 6!

They tried to seize the opportunity of the totally distorted and exaggerated situation, and make a big revival of the Civil Rights crusade from the 1950’s-60’s! Jesse Jackson had the biggest opportunity, to make Terri Schiavo’s globally televised torture and execution, the wake-up call for the highest priority Civil Rights crusade of the 21st Century.

These demonstrators from ADAPT want out of the concentration camps, the same replicas of Hitler’s concentration camp warehouses during the 1930’s-40’s, where he finally decided to exterminate virtually all people with disabilities. ADAPT landed at the Whitehouse to demand the Community Choice Act, which both Obama and Biden agreed to during the election campaign.

Eileen Sabel said, “I’m a survivor of a nursing home”; and, “I could tell you stories that would curl your hair.”–Believe me, anything she can say along that line is no exaggeration!

Another demonstrator had a flier which says, "You think prison is bad, trying living in a nursing home.”–Again, it’s just a fact of life!

There is a mentality associated with working in these places, and workers pretty much set up a little prison clique. Any long-term patients they don’t like, the head-nurses or whoever the administrators are, are usually unaware there is a problem with their workers. You might have two or three decent workers who help you do the things you need to do, and they are sociable and friendly. But half the workers usually don’t want to be out of step with what’s cool!

The few valuable workers get over-worked, because they try to make up for the lack of help the gang members are unwilling to do. Patients don’t get cleaned right, and it causes problems which make them really uncomfortable. Patients who need to be fed, don’t always get fed right if they take longer than the worker wants.

Another problem is when workers hate doing dirty work, and treat the patients rough and hurtful, as if they’re teaching them a lesson to make less mess to clean up. In reality, such people should not be involved in care-giver jobs, because there is alot of dirty work involved.

With this move to get the CCA passed in the U.S., and working effectively, one thing you don’t want is the same abusive criminal elements who work in the nursing homes, also working as your home-care workers.

When I scored an apartment and had home-care services, it was controlled by the same government resources, and quite a few long-term care workers in hospital and nursing homes or other institutions, also work as home-care workers.

What is wrong with this is that Disabled People, who are in good enough shape to rent an apartment or house but require a minimum of basic assistance, are people who just want to live their lives. I’m thinking of my own situation at the time, after I had fully recovered from three respiratory failures between ‘93-94!

At the time, just like most of the time, I’m really not “sick”! I’m “disabled”, but I’m not “a disease”! So, at my apartment, one thing which really irritated me was this mentality that I was one of the patients which home-care workers were assigned to. It’s time governments changed their attitude toward our minority.

Disabled People and disabling diseases are not the same! Disability is not a disease, but you sure can’t get it through the governments’ thick skulls. People with disabilities have medical problems, the same as the “undisabled” population do.—And some people with disabilities develop “disabling diseases”, the same as the “undisabled” population do.—So, what’s the big deal?

Governments have so medicalized our lives, all they can relate to is medical objects. That is how they treat us, and that is why the only system they have is “the medical system”. There should be an entirely separate system and separate resources, and a separate budget unrelated to health-care, to cover the needs for the Community Choice Act. There is no need to cut health-care resources and funding, and it’s not right to do so.

The situations you don’t want to have to deal with if you’re living alone at an apartment or house, are situations where a worker starts using you for a punching bag, or women being raped by their home-care workers.

One of my first two home-care workers during the first week, one morning started talking about hitting me. Then he told me how he hits a disabled guy he works with. So, at the time I was in better shape than I’m in now. I replied by telling him to look around the apartment. Then I explained that it really wouldn’t accomplish anything if we started going that direction. I told him about my dad, and explained “I’m built to survive”, and that if necessary I would destroy the entire apartment to do so. He shut-up, left, and never came back.

Other situations at my apartment involved workers not coming, and they never called the agency so another worker could be sent. Especially in the mornings, I got stranded a few times because of that. So, I’m well aware that the way my situation is now, I could never move out of long-term care unless I had a girlfriend to live with. It would make it easier at times when a worker didn’t come.

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About Ironsides

I was born in 1951 with Arthrogryposis, developed scoliosis at ten years old, but travelled alot and worked in several countries with a religious cult.
All my adult life I have had to live with others, and after three respiratory-failures I had to move into a long-term care institution.