ROP....please read

Can anyone share their experiences with me? Our little boy has stage 2 and the left eye seems a little worse. They are saying he is pre plus disease in that eye. He's 12w1d or 39w4d today. He weighed 1lb9oz at birth but was on room air (21%). He's a pprom baby (water broke at 18w2d...del at 27w3d). They will check him wkly to see how it progresses. Thanks for reading!

Can anyone share their experiences with me? Our little boy has stage 2 and the left eye seems a little worse. They are saying he is pre plus disease in that eye. He's 12w1d or 39w4d today. He weighed 1lb9oz at birth but was on room air (21%). He's a pprom baby (water broke at 18w2d...del at 27w3d). They will check him wkly to see how it progresses. Thanks for reading!

I have twin girls born at 26.3 weeks. One was on a ventilator for 3 weeks and the other was on for 6 weeks. Both girls ended up getting stage 2 ROP and were checked every week for a while but it eventually cleared up on its own and the ophthalmologist said that there will be no lasting damage for either one. They are now 7 months old 4 months adjusted. Hope the helps!

I have twin girls born at 26.3 weeks. One was on a ventilator for 3 weeks and the other was on for 6 weeks. Both girls ended up getting stage 2 ROP and were checked every week for a while but it eventually cleared up on its own and the ophthalmologist said that there will be no lasting damage for either one. They are now 7 months old 4 months adjusted. Hope the helps!

My dd just had surgery for stage 3 ROP. My water broke at 23w6d and she was born at 25w4d. Her eyes were still fused shut when she was born. She started getting weekly eye exams when she was 28 weeks and by 32 weeks she showed stage 2ROP. She came home at 38 weeks and continued weekly exams with the idea to make the appts every 2 weeks once she hit 44 weeks, assuming there wasn't any change. At her 44 week exam they noticed it progressed to stage 3. She had surgery the next day. She stayed overnight in the hospital and came home the next day.

My dd just had surgery for stage 3 ROP. My water broke at 23w6d and she was born at 25w4d. Her eyes were still fused shut when she was born. She started getting weekly eye exams when she was 28 weeks and by 32 weeks she showed stage 2ROP. She came home at 38 weeks and continued weekly exams with the idea to make the appts every 2 weeks once she hit 44 weeks, assuming there wasn't any change. At her 44 week exam they noticed it progressed to stage 3. She had surgery the next day. She stayed overnight in the hospital and came home the next day.

I have a little guy born at 27 weeks 1 day. He was on the ventilator less than a day, on cpap and high flow nasal cannula for weeks and weeks. We were diagnosed with stage 2 rop. By our second visit to the doc after discharge (about 1 week adjusted) he had shown great improvement and we were downgraded to a stage 1. We will still monitor the blood vessel development in the retina. I had done some reading saying that there are some kids with stage 2 rop that don't even need glasses. And the surgery for stage 3 is 92% effective according to our doc. Good luck to you!!

I have a little guy born at 27 weeks 1 day. He was on the ventilator less than a day, on cpap and high flow nasal cannula for weeks and weeks. We were diagnosed with stage 2 rop. By our second visit to the doc after discharge (about 1 week adjusted) he had shown great improvement and we were downgraded to a stage 1. We will still monitor the blood vessel development in the retina. I had done some reading saying that there are some kids with stage 2 rop that don't even need glasses. And the surgery for stage 3 is 92% effective according to our doc. Good luck to you!!

I was born at 32 weeks (over 30 years ago) and developed ROP. As result I am legally blind in my left eye. I can honestly say that my life has not been affected. I drive, I am an accomplished musician and I successful RN

I was born at 32 weeks (over 30 years ago) and developed ROP. As result I am legally blind in my left eye. I can honestly say that my life has not been affected. I drive, I am an accomplished musician and I successful RN

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