Watch Aldwyn’s story

Professor Aldwyn Cooper is CEO and Vice Chancellor of Regent’s University London. He has had an illustrious career in academia which has taken him all over the world, as well as a stint in television production. Aldwyn suffers from Pompe’s disease, which affects the body’s ability to process glycogen.

Watch Gary’s story

In 2004, Gary was leading a successful life as a marketing manager for a bank in London. One evening, whilst preparing for a big presentation due the next day, Gary suffered a perforated bowel. This incident came as a shock and changed the course of Gary’s life significantly.

Watch Caleb and Daniella’s story

In 2010, Caleb was diagnosed with a very rare metabolic condition called MPS II Hunter Syndrome. The disorder means that his body lacks an important enzyme required to break down the body’s natural waste, with symptoms including physical illness and learning difficulties.