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446 Visitor Messages

oh, you are one of the many lupies that deal with insomnia....mine seems to have its own mind. Sometimes i am awake at all hours of the night, and then i go through a time where i am asleep by 9 and up by 2 or 3....just when i get accustomed, it changes...

sorry to hear of your tough month, it sure is nice to come here and read when we feel bad, or just lonely.
I just want to do it at normal times of day rather than all through the night into the early morning...

I've started threads that have had little to no response. It doesn't bother me. I've gotten tired of having to explain myself about the same thing, to the same people.I hadn't seen the other posts, so I figured that it wouldn't hurt to try. I just remember that when I came, I was a little afraid since I didn't know anything about anybody. Since someone actually brought up her fear, I thought I'd try and help a bit.

Hi there my sweet friend! Thanks for helping to comfort me some about it. There's a lot to consider. I know I'd be a nervous mess if it wasn't for the WHL gang and having such a good rheumy. Did you know that the doc's office does a lot thru email? When I signed in at my appt, there was a slot to put in our email address and I did. I got an email from them wanting me to register in their system...wow. Make appts, ask questions, get lab results thru email. Cool!

I'll ask Oluwa for her opinions. Thanks. You forgot to tell me how you are Phyllis...fill me in. Are you feeling better?

phyllis good to hear from you i am just like you had a bad week but glad to talk to you mikaela still recovering from lumbar puncture goes back to school tommorrow after vacation fearful about bullying still having to have more tests . stephen is sick again with ross river fever and lung problems like you i have been flaring up had virus made it worse. depression a bit bad at moment taking one day at a time. enough about me i hope you are feeling a bit better my friend i worry when i don,t see you in forum please take care my friend i am here for you if you need some to talk to hugs kim l

I wasn't able to talk after all either...John had the stomach flu over the weekend into Monday...at first we thought maybe it was something he ate friday night, but when Amber started throwing up, and then we heard about other people they work with being sick with the same symptoms, and then oh man, I don't know if I had it too or it was just the medrol leaving my body but yuck, yesterday was really yuck! So sorry you were down Phyllis. Sounds like it was bad. I hope you are feeling better today. I'm still amazed at my throat...but it's back to being the same as it was. At least I have a script for something to try for that. I wonder if mtx or imuran would help with that problem too. I still haven't decided which to try yet. I see Doc Kim again on the 5th. I can't wait to talk to her again...I've got a lot more questions to ask her. It's great having a doc you can ask any question you have!! (((((Get well hugs)))))