This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.

Hi everyone
well i just got back and i was told that i have less blood flow from my left jugular, i get my results from my Doctor tomorrow so i will have more details then.
Yes kats your right it cost me $225.00 and no medicare refund but to be honest i really don't care, at least now i feel like i am on the right track.Dr Julie Gregg is very nice i told her that my next step is to try and find someone to do the mrv she said they are waiting on the softwear.
I will update more info after my doctors appontment tomorrow.
elaine

This afternoon I underwent the 45min Colour Doppler by Dr. J.G. and can confirm that indeed the readings of my neck veins are "not what is expected" of a normal scan. The data will be reviewed and then reported to my GP.

This information by itself is of course inconclusive as the complete CCSVI protocol criteria have not been met but would be enough to warrant further investigation via MRV. That may possibly happen as referral from my GP.

MRV examination at this clinic is still a few weeks away as software not installed as yet, and then they will be wanting to test on 'normals' first.

How many of us have been tested with similar results?
Would anyone in Melbourne who is interested in meeting to discuss further action please PM me.

This afternoon I underwent the 45min Colour Doppler by Dr. J.G. and can confirm that indeed the readings of my neck veins are "not what is expected" of a normal scan. The data will be reviewed and then reported to my GP.

This information by itself is of course inconclusive as the complete CCSVI protocol criteria have not been met but would be enough to warrant further investigation via MRV. That may possibly happen as referral from my GP.

MRV examination at this clinic is still a few weeks away as software not installed as yet, and then they will be wanting to test on 'normals' first.

How many of us have been tested with similar results?Would anyone in Melbourne who is interested in meeting to discuss further action please PM me.

Hi,
well last August first Dr. Simka and Dr. Kostecki made Doppler to me - left jugular valve propblem.
I had couple of Dopplers in Slovakia and I have to say that one doctor was very interested and found no blood flow in my left jugular but did not know why. At the beggining it looked just normal to him.

I want to have my iron deposits in brain to be check. I wait for software installation as well. I hope the manage.
Good luck!
Erika

Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs- Jan. 19, 11: control venography in Katowice - negative but I feel worse

My wife who has mild MS, had a quick doppler done by an IR who immediately picked up some 'turbulence' in her left jug. He is now setting up a venography and possible angiogram for her. He felt there was no need for an MRV, the venography will pick up everything.

I had my 45min Colour Doppler by Dr. J.G. this afternoon. She told me most of the figures look within limits with just some slight narrowing on right side. So I am looking forward to getting results from GP.

Will post more once I speak to GP, hopefully tomorrow. Regardless I still want to perform the MRV and any other tests I can even if I dont qualify as CCSVI.

I'm booked in to have a Cranial Doppler on Tuesday. I'll write a post if this is successful - the analyst has used Cranial Doppler a lot...but never to assess blood flow in veins. It may tell me more info than my recent MRV - which showed one definite stenosis, 1 suspected stenosis, and a very narrow IJV.
hwebb

Who is online

This site does not offer, or claim to offer, medical, legal, or professional advice.
All treatment decisions should always be made with the full knowledge of your physicians.
This is MS does not create, endorse, or republish any content.
All postings are the responsibility of the poster. All logos and trademarks in this site are property of their respective owners. All users must respect our rules for intellectual property rights.