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This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
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Does Anyone Have Gluten Free List?

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11 posts in this topic

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Hello. I was wondering if anyone had a simple list of food products that are gluten free? A list of foods that I can just go to a grocery store and buy. I have been gluten free for 2 weeks now but I still struggle with figuring out what is gluten free and what isn't. I'm to the point now that I am so hungry. I don't know what to eat so I'm not eating much of anything. If anyone knows of just some regular foods I could get that would be extreamly helpful. Thanks so much! Susan

Just about all the produce (not wheatgrass) and meats/veggies that you want! I know, I know, you probably meant packaged/processed foods... But honestly, it's worth the extra time to KNOW they aren't contaminated due to a factory and have better tasting food. (steps down from soap box) And with a bit of practice, cooking from scratch doesn't have to take that long either. I don't do prepackaged stuff, but with the help of my skillet and the bbq, usually don't take longer to cook a meal than half an hour (if I do any actually "cooking" and don't make a cold dish).

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I want to thank all of you so much for helping me. I didn't realize how emotional this disease and diet would be for me. I've been on the http://homepage.mac.com/sholland/celiac/GFfoodlist011604.pdf site for a couple hours reading. I felt an overwhelming releif when I read all the things that I actully can eat, it made me cry. Thank you Dana. Everyone is so nice here. I don't know what I would do if I didn't have this site to come to. Susan

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Hey Susan, we're all in this together! You guys are the best buddies a celiac disease could ever have! Where else can you talk about loose bowel movements and vanilla extract in the same conversation? Just remember, no question is too "dumb" or too out there to ask.

By the way, if you haven't read in my other posts, Italy tests all kids for celiac disease by age six...and I am so inspired by that that I am determined to make it a part of the regular kindergarten admittance requirement in the US. Seriously! I'll keep you guys posted, but anyone who knows me knows that if I decide to do something I don't take no for an answer. celiac disease has taken a huge toll on my family--both my 11-year old daughter and are are celiac disease--and reading all these posts, day after day, filled with suffering in all shapes and sizes infuriates me that our alleged "best" system in the world is light years behind when it comes to celiac disease. FYI, it takes the average adult celiac disease in Italy 2-3 WEEKS from onset of symptoms to diagnosis. It takes the average American 10-11 YEARS! AAARRRRGGGGHHHH!!!

We have got to change this. Sorry for the rant. I just get so p/o'd about all the kids in pain, not to mention all of us! Hang in there everybody!

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Interests:Strengthening my relationship with Jesus Christ, my husband and kids, learning as much as I can about gluten intolerance and the gluten free lifestyle, and last, but not least, reading mystery novels.

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Guest barbara3675

It is interesting to note that the above mentioned list is updated very often and the people that do this do it with the prime interest of helping people with gluten intolerance and not for personal gain on their part. Just from July 04 to September 04 the list went from 49 pages to 51 pages. Although it isn't all that handy to take to the grocery store, it sure is a Godsend for those that need some help in knowing that there are products that can be bought from the regular stores that fit into everyday life.

Barbara

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There is also a great list, and constantly being added to, at the Celiac Forum in the Delphi Forums group. Go to www.delphiforums.com and go to Health & Wellness. Select Celiac and walla....it's a great group, too. I've seen many of the people "here" there...so many of us go to so many groups. You learn something new from each of them.

Best of luck and hang in there, it will get easier!!

Bridget

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Also, here's what I do when I get a list. I sit down with a highlighter and find all the things I might use/find in my area and highlight it. Then when I am looking for something specific, it's easy to find. Plus it makes creating my weekly shopping list a little easier when I can just go to a section and look for my yellow marks.

I think you need to take a little time to learn about DH and celiac disease. Celiac and DH are technically autoimmune disorders. This is about DH:
https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/
Learning about celiac disease (overview):
https://celiac.org/celiac-disease/understanding-celiac-disease-2/what-is-celiac-disease/
Testing for celiac disease via blood test:
https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/
I think the full panel is around $400 and the basic budget screening which is pretty darn good (TTG IgA) is under $100.
If you are paying for your medical care (even under insurance) you have the RIGHT to copies of everything. So, when your doctor orders a lab test, ask for a copy of the order, so YOU know what he is ordering. Then you can google to see if he/she is ordering the right things. Get a copy of the results. Get a copy of the costs/receipt if you are paying out of pocket. Put your requests in writing.
I think some labs and doctors use the term for gluten allergy incorrectly. 1. There is a wheat allergy (IgE) that is like a peanut allergy which can cause anaphylactic reactions (throat swelling, breathing issues, drop in blood pressure). There are some blood tests that are about 50% accurate, along with skin scratch tests (also not super accurate. 2. There is celiac disease (autoimmune that when exposed to gluten attacks the intestinal track, skin or brain) triggered by gluten (I gave you the blood tests: TTG, DGP EMA). 3) Non-celiac Gluten sensitivity or Intolerance which is like celiac in terms of symptoms, but no antibodies are generated and intestinal damage does not occur. This diagnosis is reached when you have failed the first two as there are n tests for it.
Read through the DH section of this forum for symptoms and tips.
I hope this helps.
Finally, if you really suspect DH, you can always go gluten free. Keep in mind that you need to be strict and you need to adhere to the diet for at least six months to a year.

I mean I might get a prescription refill, or a new vitamin pill for example, and take it for awhile, with absolutely no symptoms. As we know, no symptoms does not mean no damage being done. I will feel fine for weeks, but then I start feeling awful, like a bad flu coming on. I never did get the intestinal symptoms others get.
This for me is the hardest part of having Celiac's, figuring out what did it. Last month I ended up with pneumonia because I thought the achey symptoms I was having was from gluten, maybe from cross contamination even though my kitchen is off limits to gluten, maybe from some new prescription, maybe from some new tea I was trying, maybe from new vitamins (marked gluten free but not certified, those have gotten me before), so I stopped taking all of that but didn't feel better and kept getting worse. It took me awhile to figure out I actually had a flu and by that time it went to my lungs and had to go to urgent care.

I think, at least from my personal experience, that these tests are accurate if you were diagnosed including blood work that was positive. All of the tests on my panel were positive by large numbers at diagnosis and over the next year, they went to very low normal for the ranges given. My GI symptoms were gone by then and the lingering neuro ones took longer to heal but they did. I would assume in a highly symptomatic Celiac, that resolution of symptoms, normalization of the blood work and weight gain would indicate healing. Whether I am 100% healed or not doesn't matter as my health is far better today than it was in my youth. I have not developed any more AI diseases than the 4 I already have and I call that a big win.
I think doctors do not take into account enough symptom resolution, weight gain for the skinny Celiac's or weight loss for those on the opposite end of the spectrum, as important markers for healing. I am not even sure if it is totally necessary for a person to heal 100% as there is overlap in the small intestine and nutrients are absorbed not in just one place, making it a brilliant design, when you think of it. If your health has improved dramatically on the gluten-free diet, along with the other things mentioned, then consider yourself healed well enough that you've regained your health back. Repeat endoscopy's are really for those still having problems.

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Celiac.com was founded in 1995 by Scott Adams, author of Cereal Killers, founder and publisher of Journal of Gluten Sensitivity, and founder of The Gluten-Free Mall, who had a single goal for the site: To help as many people as possible with celiac disease get diagnosed and living a happy, healthy gluten-free life!