LRF is Lymphoma Research Foundation. There might be an office in your area. Usually once a PET scan all clear, you don't have any more. A pet is a diagnostic tool, not for maintenance. Other scans, CT or MRI are less invasive.

No, it felt and looked like a small cyst under my skin. As it turned out, it was due to a bone marrow biopsy I had in 2009 where the hypodermic needle had been minutely contaminated with the DLBCNHL during the routine procedure. This had never been recorded anywhere else, ever. So, my case got published in a hemotology journal as the first instance of this happenning..treatment was 4 rounds of RCHOP21 and broad beam radiation.

What is that Goodwill number?

The Goodwill number is one way you can tell how helpful each WhatNext member has been in providing information that may help others in the network. Someone with a “0” by their name may mean that they are new to the network, while someone with a higher number means that they may have either posted more information in their journey, asked questions and/or provided answers that others may have “liked.” Your number can change daily based on your contributions and involvement.

As you get involved and contribute on WhatNext, you’ll be recognized with the following badges:

0 - 500

501 - 1499

1500 - 3499

3500+

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