Responses (2)

I had the surgery in 1992, shortly after being diagnosed with MG. It didn't seem to work for me, though I was told that it should be removed anyway. I've been on Mestinon and prednisonesince, and had a plasmaphoresis, which did help some. I'm now 79 and still going! You have to learn to live with the disease, and make adjustments. I had to stop working in 1994, but have still lived a pretty full life!

I do not have it, but my friend does he was at the point where his breathing was being affected and the removal of the thymus gland saved his life, he had major improvement in everything, especially his breathing. He still has the eye droop tho and will have that for the rest of his life. He was 23 when he was diagnosed.