tag:blogger.com,1999:blog-30174578.post1035205297367246470..comments2017-06-24T08:10:30.725-04:00Comments on Chantelle's blog: WordsChantellehttp://www.blogger.com/profile/00360587653917161334noreply@blogger.comBlogger39125tag:blogger.com,1999:blog-30174578.post-3881161912914541012010-09-20T03:07:02.992-04:002010-09-20T03:07:02.992-04:00The word Previvor and the organization FORCE helpe...The word Previvor and the organization FORCE helped save my life because I learned information online that my doctors never told me. If my doctors had thought clearly about the concept of Previvor, I could have avoided breast cancer. People have commented above, asking why you would want to know about cancer ahead of time? There is one very important reason why: Women who have genetic testing Lisa Fnoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-64730130345326279912010-09-19T18:14:31.600-04:002010-09-19T18:14:31.600-04:00I am a nurse and the daughter of a mutant. I share...I am a nurse and the daughter of a mutant. I shared your blog today at work with some oncologists and also a general surgeon specializing in breast cancer patients. They were actually speachless at first and then quite verbal about your ignorance and lack of education. Please refrain from further embarrassing your self and do some reserach on genetic mutations.Mica Harrisnoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-62544491123019699402010-09-18T21:55:39.753-04:002010-09-18T21:55:39.753-04:00About the word &quot;previvor&quot;... I think tha...About the word &quot;previvor&quot;... I think that people who&#39;ve had cancer are the ones most likely to respond negatively to that word. The word is a play on &quot;survivor&quot; and while people with the BRCA1/2 mutations are more likely to develop cancer, they aren&#39;t surviving that cancer before they get it. <br /><br />Moreover, using the word &quot;previvor&quot; equates the Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-26070547525698863622010-09-18T21:36:52.310-04:002010-09-18T21:36:52.310-04:00tweekerbeeker left this comment, which didn&#39;t ...tweekerbeeker left this comment, which didn&#39;t show up:<br />Chantelle, I am so sorry that you have to face this dread disease, and at such a young age. My mother and baby sister also faced it at a young age. If you could have avoided it, and the treatments, wouldn&#39;t you have done it? I&#39;m sure you would have.<br />Please understand that being BRCA+ does not in itself=previvor. Our Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-15205181250537407542010-09-18T20:49:20.687-04:002010-09-18T20:49:20.687-04:00Frankly, I am surprised that anyone who has been d...Frankly, I am surprised that anyone who has been diagnosed with cancer of any kind would have a problem with a word. Obviously, you have struggled through treatment, and cancer will always be a part of your life. Cancer has always been a part of my life too. I have never been told that I have cancer, but out of 10 women in the 3 generations above mine, only 2 have NOT had breast cancer and most Bethanynoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-85130893037492108062010-09-18T20:48:54.179-04:002010-09-18T20:48:54.179-04:00Frankly, I am surprised that anyone who has been d...Frankly, I am surprised that anyone who has been diagnosed with cancer of any kind would have a problem with a word. Obviously, you have struggled through treatment, and cancer will always be a part of your life. Cancer has always been a part of my life too. I have never been told that I have cancer, but out of 10 women in the 3 generations above mine, only 2 have NOT had breast cancer and most Bethanynoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-19935201926831180072010-09-18T20:47:55.568-04:002010-09-18T20:47:55.568-04:00Frankly, I am surprised that anyone who has been d...Frankly, I am surprised that anyone who has been diagnosed with cancer of any kind would have a problem with a word. Obviously, you have struggled through treatment, and cancer will always be a part of your life. Cancer has always been a part of my life too. I have never been told that I have cancer, but out of 10 women in the 3 generations above mine, only 2 have NOT had breast cancer and most Bethanynoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-15877403469390491672010-09-18T20:24:10.203-04:002010-09-18T20:24:10.203-04:00Chantelle, I am so sorry that you have to face thi...Chantelle, I am so sorry that you have to face this dread disease, and at such a young age. My mother and baby sister also faced it at a young age. If you could have avoided it, and the treatments, wouldn&#39;t you have done it? I&#39;m sure you would have.<br />Please understand that being BRCA+ does not in itself=previvor. Our founder at FORCE was diagnosed with cancer in her early 30&#39;s. tweekerbeekernoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-53240239828211641732010-09-18T18:37:56.426-04:002010-09-18T18:37:56.426-04:00You said:
&quot;FORCE isn&#39;t needed to do ear...You said: <br /><br />&quot;FORCE isn&#39;t needed to do early detection or genetic testing because if someone has a lot of family members with cancer, that person will be monitored by their doctor and possibly given the genetic testing. And if someone doesn&#39;t have a family history of cancer, the genetic testing is unnecessary.&quot; <br /><br />Oh HOW I wish you were right. If you were - Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-32528235085128413852010-09-17T19:29:13.702-04:002010-09-17T19:29:13.702-04:00Melanie left this comment earlier:
You are right ...Melanie left this comment earlier:<br /><br />You are right in assuming that there&#39;s a discussion on the FORCE message boards about this blog. Earlier this week, I stumbled on your blog when I was looking for information about the proceedings in Congress. I posted a link with the comment &quot;A different perspective on HBOC Week and Previvor Day.&quot; I guess that makes me the can-of-worms Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-12904698652242407362010-09-17T19:28:15.265-04:002010-09-17T19:28:15.265-04:00I&#39;m sorry, everyone, but changing to non-anony...I&#39;m sorry, everyone, but changing to non-anonymous comments seems to have messed something up so that your comments aren&#39;t showing. I get a notification of the comments but they don&#39;t show up. I don&#39;t know why this is happening.<br /><br />So we&#39;re back to allowing anonymous comments so that your comments show up.Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-31801744960197839902010-09-17T17:58:28.838-04:002010-09-17T17:58:28.838-04:00You are right in assuming that there&#39;s a discu...You are right in assuming that there&#39;s a discussion on the FORCE message boards about this blog. Earlier this week, I stumbled on your blog when I was looking for information about the proceedings in Congress. I posted a link with the comment &quot;A different perspective on HBOC Week and Previvor Day.&quot; I guess that makes me the can-of-worms opener. <br /><br />It&#39;s obvious from Melaniehttps://www.blogger.com/profile/14351056254118729442noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-4502238648445650392010-09-17T17:57:50.169-04:002010-09-17T17:57:50.169-04:00You are right in assuming that there&#39;s a discu...You are right in assuming that there&#39;s a discussion on the FORCE message boards about this blog. Earlier this week, I stumbled on your blog when I was looking for information about the proceedings in Congress. I posted a link with the comment &quot;A different perspective on HBOC Week and Previvor Day.&quot; I guess that makes me the can-of-worms opener. <br /><br />It&#39;s obvious from Melaniehttps://www.blogger.com/profile/14351056254118729442noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-32771424909933818442010-09-17T17:47:36.486-04:002010-09-17T17:47:36.486-04:00You are right in assuming that there&#39;s a discu...You are right in assuming that there&#39;s a discussion on the FORCE message boards about this blog. Earlier this week, I stumbled on your blog when I was looking for information about the proceedings in Congress. I posted a link with the comment &quot;A different perspective on HBOC Week and Previvor Day.&quot; I guess that makes me the can-of-worms opener. <br /><br />It&#39;s obvious from Melaniehttps://www.blogger.com/profile/14351056254118729442noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-77100611706796835932010-09-17T17:46:06.082-04:002010-09-17T17:46:06.082-04:00You are right in assuming that there&#39;s a discu...You are right in assuming that there&#39;s a discussion on the FORCE message boards about this blog. Earlier this week, I stumbled on your blog when I was looking for information about the proceedings in Congress. I posted a link with the comment &quot;A different perspective on HBOC Week and Previvor Day.&quot; I guess that makes me the can-of-worms opener. <br /><br />It&#39;s obvious from Melaniehttps://www.blogger.com/profile/14351056254118729442noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-7189493778001376682010-09-17T17:43:01.987-04:002010-09-17T17:43:01.987-04:00You are right in assuming that there&#39;s a discu...You are right in assuming that there&#39;s a discussion on the FORCE message boards about this blog. Earlier this week, I stumbled on your blog when I was looking for information about the proceedings in Congress. I posted a link with the comment &quot;A different perspective on HBOC Week and Previvor Day.&quot; I guess that makes me the can-of-worms opener. <br /><br />It&#39;s obvious from Melaniehttps://www.blogger.com/profile/14351056254118729442noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-92098751181079314252010-09-17T12:35:56.311-04:002010-09-17T12:35:56.311-04:00Comments are still welcome here as long as they&#3...Comments are still welcome here as long as they&#39;re not anonymous. <br /><br />I deleted a &quot;comment deleted by author&quot; comment earlier. I haven&#39;t, as far as I know, deleted anyone else&#39;s comments but if I have inadvertently deleted someone&#39;s comment, I&#39;m very sorry. Please post it again.<br /><br />I hate (as much as I hate anything) the word &quot;previvor&quot;. I Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-29827120863417504272010-09-16T22:22:40.012-04:002010-09-16T22:22:40.012-04:00Chantelle,
I&#39;m grateful for FORCE. The other...Chantelle,<br /><br />I&#39;m grateful for FORCE. The other support organizations and groups that are available in my area are for women with cancer, like you and like my cousin. I&#39;m healthy. And I couldn&#39;t relate. I was shocked when they sent me to an Oncologist (and the Oncologist was not very interesting in spending time with me -- not sick yet). I needed someone to talk to who Splashhttps://www.blogger.com/profile/01823935079491937894noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-19841850346849711532010-09-16T20:36:41.528-04:002010-09-16T20:36:41.528-04:00I have disabled anonymous comments on this blog fo...I have disabled anonymous comments on this blog for the time being. <br /><br />People living with metastatic breast cancer for longer than 10 years are very, very rare. Not to mention lucky.Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-5977520255644240412010-09-16T18:44:27.387-04:002010-09-16T18:44:27.387-04:00Chantelle,
My cousin had breast cancer mets to he...Chantelle,<br /><br />My cousin had breast cancer mets to her bones and lung in her mid thirties- she went to MD Anderson on a clinical trial...and is still alive today at age 62. So, to be clear, it is not always terminal. Like you stated about the mutation, it isn&#39;t 100%...to be clear, and scientific. Although you know scientifically and statistically, yet unemotionally, breast cancer Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-1246120838050354902010-09-16T17:51:21.167-04:002010-09-16T17:51:21.167-04:00FORCE isn&#39;t needed to do early detection or ge...FORCE isn&#39;t needed to do early detection or genetic testing because if someone has a lot of family members with cancer, that person will be monitored by their doctor and possibly given the genetic testing. And if someone doesn&#39;t have a family history of cancer, the genetic testing is unnecessary.<br /><br />I guess I am allowing you to be anonymous but what do you have to hide? Why not Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-79158450118949307302010-09-16T16:51:03.177-04:002010-09-16T16:51:03.177-04:00If being called a previvor helps save one persons ...If being called a previvor helps save one persons life by genetic testing or early detection, then the FORCE organization has been successful. As for being anonymous, your forum allows it. I wish you the best of luck with your cancer, with or without a mutation, cancer sucks. I hope you enjoy a long and happy cancer free life from here on. You have traveled the road I never want to be on.<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30174578.post-58401630494745109502010-09-16T14:56:24.068-04:002010-09-16T14:56:24.068-04:00Of course I&#39;m willing to leave these posts up ...Of course I&#39;m willing to leave these posts up because I believe in open discussion. It is hard to take y&#39;all seriously when you don&#39;t put your names to your posts. Posting as &quot;anonymous&quot; doesn&#39;t count for much.<br /><br />For those that don&#39;t think I understand what it&#39;s like to be afraid you&#39;ll get cancer, you&#39;re wrong. I was diagnosed with stage 2b er/Chantellehttps://www.blogger.com/profile/00360587653917161334noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-35331550226616046052010-09-16T13:24:33.428-04:002010-09-16T13:24:33.428-04:00Here&#39;s another way to look at it: Knowledge of...Here&#39;s another way to look at it: Knowledge of BRCA-1 and -2 status saves millions of $$$ every year--Don&#39;t believe me, look it up on Pubmed. The cost-effectiveness of prophylactic surgery vs. cancer treatment in the % of people with gene defects is well proven. All we want is for people who may not even know their genetic status is to have access to this information, and the right to Jillhttps://www.blogger.com/profile/07186420239375091036noreply@blogger.comtag:blogger.com,1999:blog-30174578.post-2816302719837126482010-09-16T01:36:54.341-04:002010-09-16T01:36:54.341-04:00Hi Chantelle, first, I want to say thank you for l...Hi Chantelle, first, I want to say thank you for leaving up comments that don’t agree with you. I appreciate your willingness for a discussion on the topic.<br /><br />Frankly, when I was diagnosed with a mutation in the BRCA 1 gene, I was rather put off by the word “previvor” as it did seem a little dramatic. However then I realized it was a lot shorter than “someone with a significant Anonymousnoreply@blogger.com