Webinar: Implant for Severe Sleep Apnea: Where are we now?

Join us for a free live webinar on Thursday, March 7 @4pm EST.

Find out more about hypoglossal stimulation and how it can be used to treat sleep apnea. The implant is currently FDA-approved in adults, but the clinical study led by Dr. Hartnick is focused on expanding access for children. Dr. Hartnick will also share a hypothesis with very preliminary data on how this might help with speech.

Join the WDSD 321 Virtual Run/Walk – Actively Support Ds Research

World Down Syndrome Day (3/21) and, here at LuMind Research Down Syndrome, we’re wondering how YOU plan to celebrate.

Won’t you join us in *actively* showing your support of Down syndrome cognition research by signing up to participate in the World Down Syndrome Day 321 Virtual Run/Walk event? This “virtual” event is an opportunity for people across the world to come together to advocate and self-advocate for persons with Down syndrome. We have a goal to unite a team of supporters across the world in raising funds for Down syndrome research by team fundraising throughout the month of March 2019.

To participate, we ask that you commit to taking part in some kind of physical activity throughout the month of March involving any sort of variation of the numbers 3-2-1. Then on WDSD (3/21) post pictures, or video, of your 3-2-1 activity on our Facebook Group. Participate on your own, or rally a team to help you participate and fundraise. After registering, we encourage you to set up your fundraising page and ask friends and family for their support. We have some great fundraising prizes for this year’s teams

Anyone who registers for the event will receive a cotton t-shirt and a medal, but only those registrations received before March 1 are guaranteed receipt of their shirt by March 21, 2019.

Some ideas:

Commit to walking or running 3.21 miles

Swim 321 laps in the pool

Hop on the elliptical or Stairmaster for 32.1 minutes

Don’t be afraid to get creative! We’ve had participants send us their photos of going for a run along Route 321 or commit to running 3.21 miles EVERY day throughout the month of March!

Whatever activity you decide to do from lacing up your running shoes, snap on your helmet, or dive in as part of the World Down Syndrome Day 321 Virtual Run/Walk and support cognition research!

The 35th Annual Conference at the DCU Center in Worcester, MA on March 23rd.

We’re proud to partner with the Massachusetts Down Syndrome Congress (MDSC) team to collaborate and sponsor their first research-focused event for families — Shaping the Future: The State of Down Syndrome Research Today.

This year, the community will gather to delve deep into the promising developments in Down syndrome research and the exciting potential it has for the future with session topics including:

→ innovative clinical trials and studies underway nationwide that have promise to make a difference in people’s lives

→ information on the latest groundbreaking research into “silencing the extra chromosome.”

→ how to participate in Down syndrome-specific research studies, including the National Institute for Health’s DS Connect portal.

The offerings address the needs of people with Down syndrome from childhood through aging adult with useful information for self-advocates, siblings, grandparents, support providers, education and medical professionals, and researchers.

To learn more and take advantage of the early-bird registration rates, visit the conference website before March 11.

The 2019 NDSS Down Syndrome Adult Summit is open to all individuals who play any role in the life of individuals with Down syndrome with a specific focus on caregivers, family members, professionals, and individuals with Down syndrome.

Join LuMind RDS Runners at the Flying Pig Race Series on May 5th, 2019!

The Cincinnati Flying Pig Marathon is a beautiful course, which flies along the streets of Cincinnati, Covington, Newport, Mariemont, Fairfax and Columbia Township. Join us for the 5K, 10K, Half, Full, or Relay Marathon.

Join LuMind RDS Runners at the Pittsburg Marathon Series on May 5th, 2019!

Join us for our 2nd time at this amazing race for a weekend full of family fun and races! With so many distances to choose from – full marathon, half-marathon, five-person relay, 5K, kids one-mile and pet walk – you’re sure to find the race that’s right for every member of the family!

Picture yourself racing on the roadbed of the Golden Gate Bridge as the California sun breaks through San Francisco’s iconic maritime fog. Bursting from the Embarcadero’s waterfront start line at the break of dawn. Racing through towering eucalyptus and redwood trees in Golden Gate Park. Passing AT&T Park with its atmosphere of game day anticipation and the crack of the bat. There are 4 different race options, join us for a 5k, 10K, Half Marathon or Full Marathon

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To find out more information about the conference, go to the DS ACT website at mydsact.org Our thanks to DS ACT for inviting LuMindRDS and for the conference committee for their exceptional work organizing this conference.