Cancer Survivors Network - Comments for "Diagnosed Stage IV Metastatic June 2011 : Brain, Liver &amp; Lung : Started Yervoy!"https://csn.cancer.org/node/226650
Comments for "Diagnosed Stage IV Metastatic June 2011 : Brain, Liver & Lung : Started Yervoy!"en-csnRemissionhttps://csn.cancer.org/comment/1330243#comment-1330243
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<p><em>In reply to <a href="https://csn.cancer.org/comment/1328762#comment-1328762">melanoma and yervoy</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Are you saying they cannot find any cancer after the Yervoy, or do you still have cancer, but it is in remission?</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Tue, 29 Jan 2013 01:22:44 +0000Lilly2013comment 1330243 at https://csn.cancer.orgmelanoma and yervoyhttps://csn.cancer.org/comment/1328762#comment-1328762
<a id="comment-1328762"></a>
<p><em>In reply to <a href="https://csn.cancer.org/comment/1187474#comment-1187474">YERVOY INJECTIONS</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi , I was diagnosed with stage 4 melanoma in august of 2011, After 5 weeks of radiation and 3 months of a different chemo drug,I started on yervoy in december of 2011. I finished in March of 2012. Since then I have been tested every three months and I am in complete remission.I just got back from MD Anderson yesterday, ct, pet and brain mri are all clear.That being said, I cannot stress how important a positive attitude is in the whole process. Your body listens to your mind. I will say i had some mild colitis with the vervoy toward the end of treatment and for a few months after. I did take a probiotic twice a day, along with fish oil supplements and vitamin d 3. I continue to take these supplements.Other than that, I felt good while taking the yervoy. I had energy, an appetite and just felt good.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 24 Jan 2013 15:12:10 +0000Kim Ccomment 1328762 at https://csn.cancer.orgBRAFhttps://csn.cancer.org/comment/1213751#comment-1213751
<a id="comment-1213751"></a>
<p><em>In reply to <a href="https://csn.cancer.org/comment/1125755#comment-1125755">welcome</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>My husband had the BRAF mutation and tried taking the Zelboraf, but had poor side effects, they stopped after only a month. His bones hurt and it was hard for his to walk, the most affected were his ankle &amp; wrists. He got skin lesions. He was on pain medication but still could not tolerate the medicine. His PET scan showed clear in November, but felt tumor under his arm and now it has spread to his lungs, spin &amp; liver. We are going to start Yervoy.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 02 Apr 2012 14:47:28 +0000lmaso1comment 1213751 at https://csn.cancer.orgYERVOY INJECTIONShttps://csn.cancer.org/comment/1187474#comment-1187474
<a id="comment-1187474"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/226650">Diagnosed Stage IV Metastatic June 2011 : Brain, Liver &amp; Lung : Started Yervoy!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Mom of 2 Kids:</p>
<p>How are you fareing with your Yervoy treatments? Any serious side effects? How is the fatigue level? I have a Stage IV "occult metastatic melanoma" with the primary tumor in my esophagus. I start Yervoy today. Chemo with Taxotere and Carboplatin was effective after the first three chemo infusions but after the next three the scan showed the metastases in lungs and liver growing again. I just finished thirty radiation treatments of the primary tumor over a six-weel period. The effectiveness of the radiation will not be known for several months.</p>
<p>My melanoma did not start from a skin cancer as far as my oncologist can tell. I had fourteen years of semi-annual dermatology check-ups and nothing more serious than infiltrating basal cell carcinoma promptly treated.</p>
<p>I sincerely hope you are getting a very good response from the Yervoy injections. Best of luck, Joyce in Florida</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 27 Jan 2012 13:23:32 +0000Joyce Tarnowcomment 1187474 at https://csn.cancer.orgYERVOY INJECTIONShttps://csn.cancer.org/comment/1187471#comment-1187471
<a id="comment-1187471"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/226650">Diagnosed Stage IV Metastatic June 2011 : Brain, Liver &amp; Lung : Started Yervoy!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Mom of 2 Kids:</p>
<p>How are you fareing with your Yervoy treatments? Any serious side effects? How is the fatigue level? I have a Stage IV "occult metastatic melanoma" with the primary tumor in my esophagus. I start Yervoy today. Chemo with Taxotere and Carboplatin was effective after the first three chemo infusions but after the next three the scan showed the metastases in lungs and liver growing again. I just finished thirty radiation treatments of the primary tumor over a six-weel period. The effectiveness of the radiation will not be known for several months.</p>
<p>My melanoma did not start from a skin cancer as far as my oncologist can tell. I had fourteen years of semi-annual dermatology check-ups and nothing more serious than infiltrating basal cell carcinoma promptly treated.</p>
<p>I sincerely hope you are getting a very good response from the Yervoy injections. Best of luck, Joyce in Florida</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 27 Jan 2012 13:23:31 +0000Joyce Tarnowcomment 1187471 at https://csn.cancer.orgYERVOY INJECTIONShttps://csn.cancer.org/comment/1187470#comment-1187470
<a id="comment-1187470"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/226650">Diagnosed Stage IV Metastatic June 2011 : Brain, Liver &amp; Lung : Started Yervoy!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi Mom of 2 Kids:</p>
<p>How are you fareing with your Yervoy treatments? Any serious side effects? How is the fatigue level? I have a Stage IV "occult metastatic melanoma" with the primary tumor in my esophagus. I start Yervoy today. Chemo with Taxotere and Carboplatin was effective after the first three chemo infusions but after the next three the scan showed the metastases in lungs and liver growing again. I just finished thirty radiation treatments of the primary tumor over a six-weel period. The effectiveness of the radiation will not be known for several months.</p>
<p>My melanoma did not start from a skin cancer as far as my oncologist can tell. I had fourteen years of semi-annual dermatology check-ups and nothing more serious than infiltrating basal cell carcinoma promptly treated.</p>
<p>I sincerely hope you are getting a very good response from the Yervoy injections. Best of luck, Joyce in Florida</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Fri, 27 Jan 2012 13:23:31 +0000Joyce Tarnowcomment 1187470 at https://csn.cancer.orgAll the moles I got removedhttps://csn.cancer.org/comment/1149347#comment-1149347
<a id="comment-1149347"></a>
<p><em>In reply to <a href="https://csn.cancer.org/comment/1140621#comment-1140621">Moles</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>All the moles I got removed never came back with any cancerous results, like "oh you have melanoma", etc. Doctor removed some, and said they were certain levels, and I was fine. Two I had to go in to get cut up a bit &amp; stitched up, then said those came back fine too.</p>
<p>still no idea where mine started, what mole(s) , etc started it, etc.</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Thu, 03 Nov 2011 03:20:18 +0000momof2kidscomment 1149347 at https://csn.cancer.orgMoleshttps://csn.cancer.org/comment/1140621#comment-1140621
<a id="comment-1140621"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/226650">Diagnosed Stage IV Metastatic June 2011 : Brain, Liver &amp; Lung : Started Yervoy!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>Were your moles benign?</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 17 Oct 2011 19:50:21 +0000Grambocomment 1140621 at https://csn.cancer.orgwelcomehttps://csn.cancer.org/comment/1125755#comment-1125755
<a id="comment-1125755"></a>
<p><em>In reply to <a href="https://csn.cancer.org/node/226650">Diagnosed Stage IV Metastatic June 2011 : Brain, Liver &amp; Lung : Started Yervoy!</a></em></p>
<div class="field field-name-comment-body field-type-text-long field-label-hidden"><div class="field-items"><div class="field-item even"><p>You'll find a lot of supportive people on this message board as well as the melanoma site (saw this post there too). I hope you have some good results from the Yervoy treatment. My dad's oncologist (a melanoma specialist) didn't think Yervoy would be best for dad's situation. We find out this week if my dad has the BRAF mutation that goes with the new Zelboraf medicine. Some people have been taking both with some good results. I imagine your doctors will or have tested you for that as well.<br />
There are also a lot of people who are sticking around a lot longer than their doctors thought thanks to determination, taking care of themselves, and surely in part thanks to advances in treatment with the two new meds this year.<br />
Hang in there!<br />
-DF</p></div></div></div><ul class="links inline"><li class="comment_forbidden first last"><span><a href="/user/login?destination=node/226650%23comment-form">Log in</a> or <a href="/user/register?destination=node/226650%23comment-form">register</a> to post comments</span></li>
</ul>Mon, 19 Sep 2011 05:37:56 +0000dearfoamcomment 1125755 at https://csn.cancer.org