The purpose of this study is to evaluate if the Gynecologic Cancer Lymphedema Questionnaire (GCLQ) truly detects symptoms or signs of lower extremity lymphedema in patients with diagnosed lower extremity lymphedema. Lymphedema is a chronic condition in which fluid accumulates in the tissues of the body. Many cancer survivors are living with discomfort and changes in their activities due to limb swelling following cancer treatment. If the GCLQ is able to do detect signs and symptoms of lymphedema, the investigators hope to use it as a tool in the clinical care setting to help identify women at risk for or with lymphedema. In the future, this could improve clinical care through the use of a more simple and feasible way to identify lower extremity lymphedema than measuring limbs.

To determine if the Gynecologic Cancer Lymphedema Questionnaire (GCLQ)tools detects lower extremity lymphedema symptoms in gynecologic cancer survivors & if it is a feasible assessment tool which can be used in the clinical care setting. [ Time Frame: 2 years ] [ Designated as safety issue: No ]

The gynecologic cancer survivors with lymphedema group will have documented lower extremity lymphedema. Participants will be asked to complete a one time assessment, the Gynecologic Cancer Lymphedema Questionnaire to identify lower extremity lymphedema symptoms in gynecologic cancer survivors. They will also be asked to provide feedback about their satisfaction with and the feasibility of the GCLQ as a brief assessment tool that could be used in the clinical care setting.

Upon obtaining consent, the participants without a history of lower extremity lymphedema will be asked to undergo limb volume measurements to ensure the accuracy of group assignment to the nonlymphedema group. Participants will then be asked to complete the one time GCLQ lymphedema symptom assessment questionnaire. The survey tool and Limb volume (LV) data and feedback from participants about the GCLQ will be collected. We expect the study survey to take approximately 5-10 minutes to complete and 5-10 minutes to collect LV data.

Other Names:

After completion of the GCLQ lower extremity lymphedema assessment tool, participants will be asked

to provide feedback about their satisfaction with and the feasibility of using this brief assessment tool!

Potential GYN research subjects will be identified by a member of the patient's treatment team, the protocol investigator, or research team at Memorial Sloan-Kettering Cancer Center (MSKCC).

Criteria

Inclusion Criteria:

Study group of Gynecologic cancer survivors with Lymphedema

Documented lower extremity lymphedema

History of a primary diagnosis of gynecologic cancer (vulvar, cervical and uterine only)

History of surgery for gynecologic cancer including lymph node removal

No evidence of disease or active treatment

At least 21 years of age

Able and willing to provide informed consent

English fluency Comparison Group of Gynecologic Cancer Survivors without Lymphedema

No history of lower extremity lymphedema or presence of lymphedema confirmed by limb volume measurements at the time of study participation

History of a primary diagnosis of gynecologic cancer (vulvar, cervical and uterine only)

History of surgery for gynecologic cancer including lymph node removal

No evidence of disease or active treatment

At least 21 years of age

Able and willing to provide informed consent

English fluency

Exclusion Criteria:

Inability to participate in an informed consent process

Patients with a psychiatric disorder precluding response to the survey

Contacts and Locations

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Please refer to this study by its ClinicalTrials.gov identifier: NCT00944944