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My husband had a transplant on 13th November and the doctors say the kidney is working very well, however he has to keep getting up all night long to urinate. He's been assured that this is normal but having to get up every half hour seems excessive to me. Did this happen to anyone else and if so did it get any better? We're both exhausted.

I had this - I was up 5 times in a night for the first month or so. It does get better, I think it was back to normal a few months down the line.

26/11/12 - Live donor transplant from my dad6/1/13 - Discharged - Rejection episode over7/1/13 - Getting on with life24/9/13 - Left Radical Nephrectomy of Native Kidney due to cancerous tumour14/10/13 - Back to work, getting on with life

The transplant team have said it's normal but if it goes on he will have to insist on getting some help. He doesn't always pass anything but feels he wants to go all the time. Perhaps he's still feeling theffects of the stent removal.

Trisha wrote:The transplant team have said it's normal but if it goes on he will have to insist on getting some help. He doesn't always pass anything but feels he wants to go all the time. Perhaps he's still feeling theffects of the stent removal.

Yup, had the peeing fresh air thing after stent removal too. It went away for me.

26/11/12 - Live donor transplant from my dad6/1/13 - Discharged - Rejection episode over7/1/13 - Getting on with life24/9/13 - Left Radical Nephrectomy of Native Kidney due to cancerous tumour14/10/13 - Back to work, getting on with life

While not urinating on dialysis you are warned that the bladder shrinks, I would have urges to pee all the time when on dialysis and not be able to squeeze out a drop. Stent removal can increase the need to pee for a day or so because of the muscle needed to pass the scope down is stretched.

Would guess that the longer the time on dialysis then the longer it takes the bladder to get back to its normal size.

Now 35 with Alports and I had my first kidney-versary 18th feb 2013....I hope to have many more.

The stent was removed a couple of weeks ago. My husband went to the transplant clinic today and all they could say is that it might get better. I hope so. At the moment its more restricting than dialysis as he can't go far from a toilet.

Just seen this. By the time I got a TX my bladder must have shrunk to the size of a walnut. Not only a very small capacity, but with no give. My recollection is that it took several months to get to any sort of normality. Apart from maybe a prostate check (which I am guessing would have been part of the stenting process) I think it will be a matter of a bit more time.

Yes, they have said at the hospital that his bladder has shrunk and needs to stretch. Hopefully this will improve as time goes on. We have another worry now in that the latest blood test showed a drop in kidney function and they may want to do a biopsy.

Hello.New member just joined although I've been reading the posts for a while now.Currently have kidney function of 15% and seeing the surgeon next week to discuss having a fistula in place ready for dialysis.I will probably have lots of questions to ask as things progress.

Anyway...reading this thread, I'm wondering what is the stent mentioned?

The stent mentioned is a small plastic tube inserted between the transplanted kidney and the bladder at the time of the transplant operation. Its job is to keep this connection open while the joins heal. It sits in the ureter and is usually removed at about six weeks post transplant (depending on the hospital).

Hope this helps.

Started APD July 2014On transplant and paired exchange lists.Transplant 9/5/15