This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.

Friday, August 12, 2011

Check out my new hand-me-down.

Thinking about rolling around in this thing.

My cousin John who gave me this new gadget.

Alright Dad, enough with the pictures.

Faith has been doing very well since feeling sick for about a week or more. She had 4 days without throwing up at all which is a new record or at least has been a very long time since it has happened. She has been so excited all night and it appears that the stander may be helping her build her core muscles with the way she is moving around and standing in it. With the wheels, she also has figured out how to push backwards, but she hasn't quite gotten the walking forward thing yet. It is funny to watch her push all the way through the house. Now she can disappear on us. Check out the video below to see how well she can stand.