Sunday, April 06, 2008

Eli is always will to pose for a picture...Isaac...just wants me to move! I'm trying to watch my show....and my glasses are falling off! What?!?!? I'm just a laid back man in my bumbo!!! I made this today for my Grandma...her birthday is this week... and I'll fill it with pictures!

We just relaxed at home today!!! I mean...Isaac and I didn't get out of bed until 8:30!!! (I mean...I started the feeding pump at 6am, flushed it at 7am, changed him at 2am and 6am....but, just hoping back into bed because he falls back asleep is HEAVENLY!

Isaac has been a little odd lately...more odd than usual. He's started wretching again and is a little more fussy than usual. He's still on the O2...and we haven't changed anything...so, it's just him messing with me again!

Poor Joe had to work today...but, he did make it home for dinner!

Eli doesn't know what to do with himself now that school has been out for a week. Every five minutes he tells me how bored he is. We'll read a book together...then, he'll tell me that he's bored again! I can't keep that little guy entertained.

Chris...he's been begging us for weeks for put some of his old video games on ebay to sell for him. FINALLY, today I gave in and put one up for him. He's so giddy...he keeps getting online to see how many people are watching it!

Me...I'm pooped. My back hurts (and we have a sleep number bed--I bet Joe changed my number to be mean!)...but, Eli and I had a talk today...and we're ALL taking a nap tomorrow!

I'm sorry it's been so long since I've left you a note! I think of you guys all of the time, though, and I do check in! You're so sweet to leave me so many encouraging messages on Emma's site....they help me more than you know as we head into these next few days. (Knock on wood....so far, so good.)

I love the pictures of Isaac with his glasses falling down on his nose! He's so stinkin' adorable!!! :)

And you are one crafty momma! I love all of the stuff you're making! And the tu-tu on Isaac?! He's going to really appreciate that picture someday! ha!

Well, give that little man a big hug from us. I hope the wretching stops soon....just curious, does he take anything to speed up gastric emptying? (Emma had a lot of wretching problems at his age, too, and she takes a low dose of Erythromycin...because it has a side effect of gastric emptying. Just thought I'd share...)

Take care, and thanks for mentioning us on your blog! We need lots of prayer!

OK, how crazy was this...with all the Yo Gabba Gabba talk you're doing all the time I thought someday I'd look it up and see exactly what it was all about. So, today was the day..I go to the website and who do I see???? Isaac!!! Next picture?...Eli!!!! Maybe you'd mentioned it before and I didn't pay attention, but it freaked me out!!! Here's the link:

Isaac

About Isaac

This is the blog following the adventures of Isaac, our third son. He was born (3/28/07) with Severe Tetralogy of Fallot, Pulmonary Atresia, VSD, Major Aortopulmonary Collaterals, Right Aortic Arch, DiGeorge Syndrome, and Cleft Soft Palate. We appreciate all of the support we have received from our friends and family and welcome you into our hearts and lives as we continue on this journey.

As of Nov. 2009, he's FINALLY sitting up and crawling!! He's such a quiet little man...no babbles yet...but, when he starts talking...I'm sure he'll never stop! He's solely g-tube fed, but has started 1-2 jars of baby food a day (it might take a while...but, he'll learn to LOVE food like his mom and dad!) His favorite thing is "Yo Gabba Gabba"...he's glued to that show ALL DAY, EVERYDAY

To date he's had....1 stomach surgery, 2 open heart surgeries, 6 heart caths, and 1 cleft palate repair (where they also did a little work to his tongue and released some webbing on the inside of his cheeks).

Chris

Chris....was born on September 9, 1994. He was the only child for 8 years before we had Eli (see a pattern here...I need a break between kiddos!). Chris has been home-schooled from 3rd grade-7th grade...and now he's back in public schools in the 10th grade...and I'm proud to say that he's on the A/B honor roll!!! He's currently trying out for the wrestling team and goes to Boy Scouts. He likes video games...and that's about it. Chris is ready to start driving a car, get a job, and go to college (I'm not sure why he wants to grow up so fast!). He has such ambition and loves to share...and THANK GOODNESS he doesn't have a girlfriend yet (my nerves couldn't take it)!!

Elias

Eli...was born on June 13, 2002. He was our baby for 5 years before we had Isaac....so, he's getting use to being the little brother of Chris and the big brother of Isaac. He loves Star Wars, Hilary Duff, and Thomas the Train (not necessarily in that order!). He's currently a 2nd grader and loving school (where he LOVES to read!). He has such a tender heart and feels compassion for everyone...but, also is a tattle-tale much of the time!