Good morning everyone....it is dreaded day 3. Praying for a good day today! Camden can't kick the fevers (102-104) with Tylenol. All we can do is Tylenol every 4 hours and he spikes every 2. No Motrin because his platelets were trending down. He is miserably comfortable (if that makes sense). Please Lord get us through this. Waiting for our miracle!

Lisa Leighton-Lombardi

1/28/2014 09:14:28 pm

Prayers for you all. May God give you the strength you need.

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Mommy & Me

Mom﻿my

﻿She'﻿s ﻿goi﻿ng to keep everyone up to ﻿date about my progress. Isn't she the best mommy ever?

﻿Mommy thought long and﻿ hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

Diagnosis: May 9, 2013Surgery: September 2013Transplant: September 2013STRICT ISOLATION UNTIL January 2014Radiation: November 2013Antibody: January 2014END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO)**FINISHED ALL TREATMENTJULY 25, 2016

5 years from diagnosis!!May 9, 2018​5 years from frontline!! June 9, 2019