Tuesday, August 30, 2016

Summer's End, A Poem by Naomi

It is now the end of August
And summer's coming to an end
I really like the breeze
But don't look forward to the leaves
It tumbling to the ground will send
Because of what that will mean
That winter's drawing close
With many layers and dull gray skies
With freezing snowstorms that arise
And a cold wind that always blows
It also means that school's begun
And soon will come the frost
But fall's still fun
And when spring comes
Anew will be the things we lost

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About My Children

Naomi is twelve years old and is living with Bardet-Biedl Syndrome, a rare genetic disorder that can cause kidney failure, obesity, retinal degeneration, and various other symptoms. She also lives with Celiac Disease and multiple dietary sensitivities. Hannah is ten and lives with Celiac Disease and food allergies. Emma is eight and lives with BBS like her big sister Naomi. For Emma, BBS has also caused severe speech apraxia. Toby is seven and lives with one functional kidney. Elijah is four and is completely healthy. They are active, whimsical, and too funny to keep to myself.