With EoE, Allergies, Asthma and a G-Tube

The countdown was on until we went to Cincinnati for the kids first visit to the EoE clinic. I’m actually going to back up to a week and a half prior. Tinleigh had a field trip on Wednesday and Layton and I both woke up with a sore throat. I thought it was seasonal allergies kicking in. So off we went for the day with all the kindergarteners. I was only there to make sure Tinleigh stayed safe and hooked her up for her tube feeds. The trip was successful, however Layton and I still had sore throats at the end of the day.

Thursday I woke up, still with a sore throat, but now also with a stiff neck. Wings of Hope called me that day to check in and see how everyone was. I told them Gage, Layton and I all seemed to have a cold. They informed me that it would be a bad idea for them to privately fly us because in an unpressurized cabin with congestion we would be in a world of hurt. Luckily, they still came through for us and flew us commercially.

Friday I was the same. Layton seemed to be fine and didn’t complain anymore, still stuffy though. That day Gage had his pre-op physical. About 30 minutes before I needed to go get him from school the nurse called and said he had a sore throat and small fever. UGH! I was then guessing we both had strep. So I was planning on going into the walk in clinic once Gage was done with his appt. We were both swabbed and we were both negative. We just had some nasty sore throat virus that was going around.

Did you know: if you eat Doritoes you must wait at least an hour before having a rapid strep test done because there’s something in Doritoes that throw the results off. Yes, Gage was eating Doritoes right as the nurse went to swab him, so we had to wait. lol

Saturday I woke up with a common stiff neck and shoulder pain I often get on my right side. This time it was on the left. I took my prescription meds that night thinking it would be gone by morning as usual. Boy was I wrong. I was worse, much worse. I stretched all day and repeated my meds at bedtime. Sunday morning I was in pain. So as Nathan packed up to head to Florida for the week I packed up the kids and we headed to the walk in clinic. A steroid shot and prescription later we headed home.

Monday afternoon I called the doctor asking for a different muscle relaxer than what I had. I needed something that I could take during the day and be able to function because what I had knocks me out.

Wednesday morning I managed to roll out of bed and took all the kids to school. I was in tears from pain. Thank goodness my crew helped me out getting things ready that morning. My shoulder was completely locked up along with my neck. Three of my fingers were numb and I had shooting pains in my armpit and down my arm. Once I had everyone at school I went back to the walk in clinic begging for relief. Luckily it saw the same doctor I had seen on Sunday. He suggested I see his chiropractor and gave me steroids and pain meds.

Wednesday, Thursday and Friday I went to the chiropractor, never again.

Nathan got home Friday night. I put the kids to bed, took a pain pill and managed to pack and get everything ready to go. Saturday morning we had 2 baseball games and then Gage, Layton and I headed to Ohio that afternoon.

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Our family

I’m the average stay at home super mom. Run the daily grind of raising two boys and two girls.

I love coffee, dancing, painting and teaching my children how to grow into the best people they can be.

All three of my oldest kids and my husband have Eosinophilic Esophagitis, multiple food and environmental allergies and the kids all have asthma. Our youngest does not have EoE but does have some strong environmental allergies and chronic urticaria. More recently the boys were also diagnosed with Elhers Danlos type 3.

Dealing with these issues daily is hard but we still LIVE life to the fullest. Nothing holds us back. We play sports, visit animal farms, go out to eat on occasion and travel. We LIVE!

I have started this blog in hopes of helping other families dealing with these issues to see the brighter side of life. Let them see they are not the only ones. By sharing how we LIVE and handle certain situations we hope others will be inspired to try to do the same.