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pop open from pressure? oh goodness, i hope that gets resolved for you, even if it's not an everyday thing for you. What did your doctor say about HIV's ability to cause PN independent of meds issues? I've heard members here say that HIV itself can cause PN

yeah, he said that it can,, he also realizes that i probably know everything more than he does from obsessive reading regaring HIV, he said that with PN, it tends to travel up your legs,,,, unless that happens, he told me to just keep monitoring it and see what happens,,, not whole a lot they can do... i am f$%ked for life

Egello , I have the PN and have had it since 1994....it does travel up my legs..sometimes more than others....doesn't always "hurt" most times it just feels tingly or sort of numb...I have been using Neurontin for most of that time..It certainly seemed to help, when I don't take it ( tried to reduce dose) the the creep starts up the legs again.......also ..you need to be aware of the DVT..(deep vein thrombosis) this condition van be more serious..especially if you sit for long periods of time or lie down ( that is why getting out of bed can be a bitch some times...) until you get up and move around to get things moving again.....hopefully as you are working out regularly this will not be a problem.... There are other treatment beside Neurontin but this one has worked for me so I stick with it...

Neuropathy is certainly a strange bed fellow, I say this with all seriousness, because it comes and goes as it pleases, and will always feel different than the last time. I started meds right after diagnoses and with 2 years I had tinling and numbness in my fingers and toes, strange because I had high tcell and low viral loads. I took a nine month holiday, and it went away. It took 8 years to come back. I have a thumping in my Left heel, like there is a AA battery source there, and the bottom of both feet are numb. I get a burning feeling some times, and I still get the numbness in my finger tips. That is bothersome but I have learned to deal with it. I cannot sleep with anything covering my feet or toes, IE blankets sheets, etc. Good thing I live in Florida. I have tried every drug and nothing works for more than a few weeks. I came off a three year drug holiday a couple of years ago, and the pesty beast never let up. I am now taking monthly shots of injectable B-12. It is only one mil. but it gives me relief for 3 out of the 4 weeks monthly. I am hoping that I can get the dosage increased eventually. I pray they could just come up with a cure all side effects pill, wouldn't that be something nice to wish from Santa.Hope i helped a little.Al

Logged

Gordonh28 ( Al )

I have been in St Pete, Fl. for 9 years.Moved here from Miami, I lived there for 12 years. (Diagnosed in 1995)

One line of thought is to follow diabetics who suffer from PN as well. supplements such as Alpha Lopaic Acid and other anti oxidents may help. Alwasy tell your doctor, some of this stuff interacts with meds!