The Medical Home Portal
also partners with five other
states to offer their residents information about local community and professional service
providers,
found in the Services Directory tab and integrated into the
Portal's content.

Information, guidelines, tools, and resources for assessing
and managing children with any of 45 conditions . Though written
for the primary care team, these pages hold useful information for
anyone caring for CYSHCN.

Vision: All children and youth with special health care
needs (CYSHCN) and their families achieve optimal outcomes through
improved availability and quality of information, healthcare,
related services, and coordination of care.

Mission: To help professionals and families work together
to care and advocate for CYSHCN.

Long-Range Goal: To improve outcomes for CYSHCN and their
families by enhancing the availability and quality of healthcare,
related services, and coordination of care.

“I use the Medical Home Portal mostly in two ways-- as a
reference to help in the management of CYSHCN with specific
diagnoses-- the articles, etc., have been selected carefully for
their utility in everyday practice-- and as a resource for
families looking for information. Accessibility of information
keeps me coming back.”

Bob Terashima, MD, Pediatrician from Utah

“Our son has Prader-Willi Syndrome. I just wanted to say that
I've seen a LOT of descriptions of PWS on different websites and
yours seems to be one of the most *accurate* and comprehensive!!
Thank you so much. You have no idea how important it is to those
of us who deal with PWS that when the public is educated about
it, that they are getting good information. Keep up the good
work!!”

Name not published (HIPAA)

“I’m a second year MSW intern at the Regional Autism Center at
The Children’s Hospital of Philadelphia. I just wanted to let you
know that I found the Utah Care Notebook online and love it. I
will be using it as a model for the development of my own sheets
for families we see at CHOP. Thanks so much for making this
wonderful resource available to families and caregivers! ”