Best advice I can give you is to try to find a knowledable CFS/ME specialist to work with you to try some things.
2/ Pick on one symptom at a time in trying to find a treatment for it. eg things like IBS can be helped.

Sorry things are so hard for you now. CFS definately sucks. I want my life back too!! Personally I'd rather be hiking up a mountain right now but alas, it is not to be...

I like what has been said so far. My addition:

A. What helped you before?

B. Go back to the beginning, focusing on
1. pacing
2. rest
3. more pacing...
4. more rest...
5. finding a good health practitioner(s)

6. diet changes -- perhaps an elimination diet to find what your body likes and doesn't like. Could start with the basic allergens: wheat, corn, etc. Also, does your body like food better if it is cooked? raw? etc.

I follow the blood type diet, it helps me. I can tell what foods my body likes because I don't get a heavy/fatigued feeling afterwards. probiotics also helped.

7. detox, detox, detox -- infrared sauna, if possible, or regular sauna; eliminate toxins from environment, add nature. more the better. also, some house plants detox air. buy a high quality air purifier.

8. supplements. what has worked for you? so many great suggestions on this forum and on the web. if you take a lot now, maybe you need to clear the body of them all for a short time, start fresh. sort of an elimination diet for supplements.

Sorry things are so hard for you now. CFS definately sucks. I want my life back too!! Personally I'd rather be hiking up a mountain right now but alas, it is not to be...

I like what has been said so far. My addition:

A. What helped you before?

B. Go back to the beginning, focusing on
1. pacing
2. rest
3. more pacing...
4. more rest...
5. finding a good health practitioner(s)

6. diet changes -- perhaps an elimination diet to find what your body likes and doesn't like. Could start with the basic allergens: wheat, corn, etc. Also, does your body like food better if it is cooked? raw? etc.

I follow the blood type diet, it helps me. I can tell what foods my body likes because I don't get a heavy/fatigued feeling afterwards. probiotics also helped.

7. detox, detox, detox -- infrared sauna, if possible, or regular sauna; eliminate toxins from environment, add nature. more the better. also, some house plants detox air. buy a high quality air purifier.

8. supplements. what has worked for you? so many great suggestions on this forum and on the web. if you take a lot now, maybe you need to clear the body of them all for a short time, start fresh. sort of an elimination diet for supplements.

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thanks laura,
you said encouraging, more so than my ex. She basically dumped me because of this illness.
suana, yoga, tai chi are on my list of things to do
my diet is solid.
no supplement really had any effect on me, except for Malic acid with magnesium for my muscle pains.
since ur in cali, did u give ldn a try?

did you get tested for low testosterone?
thatwas one thing ME did that at least had a treatment (screwed up pituitary gland, which sends out a control hormone for testosterone, no control hormone = no testosterone or sort)
testosterone shots didn't "fix" ME, jsut made it a LTO more bearable

If you do sauna, make sure it's a far infrared sauna and beware public saunas...and take it gently. If you have subtle chemical sensitivities, the risk with a public sauna is that your pores are open and you absorb whatever perfumes and other toxins the other people who used the sauna were wearing.

If you do yoga and tai chi, again remember to take it gently.

my diet is solid.

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I definitely wouldn't take that for granted. What would conventionally be "a healthy diet" isn't the same for us at all. For me: according to the tests from the hospital, I have no allergies at all. But private tests confirmed a huge range of subtler sensitivities that I identified myself through trial and error. I can only eat beef, potatoes, peas and (rather luckily and unusually) milk, cheese and fruit. Anything else gives me indigestion, diarrhoea, fatigue and worsening of all symptoms. There's no doubt about this, over years and years it's been the same, and anytime I try to change it, and eat my favourite foods, it always has the same result. Do you have any stomach upsets, or diarrhoea? If so, then your diet may be solid, but not necessarily right for you...

no supplement really had any effect on me, except for Malic acid with magnesium for my muscle pains.

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There's a big green light for you! Magnesium is a very popular treatment for ME/CFS, as part of a controlled supplement regime. If magnesium worked well for you, it's a good idea to stick with that and follow up on it. And not all supplements are the same - so if there's a specific product that had positive effects, it's not a bad idea to stockpile some supplies while it's still available...

Did you try CoQ10 and B12 as well? If magnesium was good for you then you might notice positive effects from them as well.

I belong to mailing list for info on ME/CFS and I just looked at the messages and saw that someone recommended a website. I have not checked it out myself, but one of the people offering advice is Dr. Lapp. He specializes in CFS treatment, so the information is likely to be useful.

I belong to mailing list for info on ME/CFS and I just looked at the messages and saw that someone recommended a website. I have not checked it out myself, but one of the people offering advice is Dr. Lapp. He specializes in CFS treatment, so the information is likely to be useful.

I haven't read all of the responses to your threads, so if someone else has offered this information, pardon me.

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Dr Lapp is 380/hour and he usually sees patients for 3 hours over 1000 big ones! This illness is expensive even with the best insurance!!
However they are doing the ampligen trials, so that is good news. thanks for that site-- I didnt know all this info till now :O

I belong to mailing list for info on ME/CFS and I just looked at the messages and saw that someone recommended a website. I have not checked it out myself, but one of the people offering advice is Dr. Lapp. He specializes in CFS treatment, so the information is likely to be useful.

I haven't read all of the responses to your threads, so if someone else has offered this information, pardon me.

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WOW!! that is one of the best self help sites on cfs i have seen and they dont make unrealistic statements like curing cfs etc but talk about improving peoples function etc. A very good site for people who are just starting out with cfs.
good find!!