Resources for you

Research Participant Information

ClinicalTrials.gov: The government's Clinical Trials site provides patients, family members, and members
of the public easy and free access to information on clinical studies for a wide range
of diseases and conditions.

patientINFORM.org: This is a free online service that provides patients and their caregivers access
to some of the most up-to-date, reliable, and important research available about the
diagnosis and treatment of specific diseases.

Is a Research Study for You?: The Medical College of Wisconsin, with support by the National Institutes of Health,
presents a guide to understanding your rights and responsibilities as a participant
in a research study.

General Health Information

FDA Kids' Home Page: Information just for kids and teens from the U.S. Food and Drug Administration (FDA).
Kids and teens can learn about health and safety through songs, quizzes, interactive
games, puzzles, and more.

Genetics Home Reference: This site of the National Library of Medicine is a consumer-friendly guide to understanding
genetic conditions and the effects of genetic variations on human health.

Glossary of medical terms: a list of terms you may hear during your conversations with the researchers about
participating in a research study.

MedlinePlus: This site brings together authoritative information from the National Library of
Medicine, the National Institutes of Health (NIH), and other government agencies and
health-related organizations to help answer health questions.