NCT02775383 Clinical Trial - National Cancer Institute

The goal of this study is to establish a publicly available resource to facilitate the study of MDS natural history and that will support high-impact studies for MDS patients. It is for patients who have not yet received treatment and are suspected of having MDS, or have received a diagnosis (without treatment) within the last 6 months.

Tissue Collection and Natural History Study of Patients with Myelodysplastic Syndrome or Myeloproliferative Neoplasms

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Basic Trial Information

Phase

Type

Status

Age

Trial IDs

No phase specified

Natural history/Epidemiology, Tissue collection/Repository

Active

18 and over

NHLBI-MDSNCI-2016-00281, NCT02775383

Trial Description

Summary

This research trial collects tissue samples from and studies the history of patients with myelodysplastic syndrome (MDS) or myeloproliferative neoplasms (MPN). Collecting and storing patients' bone marrow, blood, eyebrow hairs, buccal swab, skin, or other tissues to be studied in the laboratory in the future may help doctors learn more about MDS and blood disorders that may lead to MDS. Collecting information about patients and the treatments they receive may allow doctors to better understand how MDS changes over time and this knowledge may lead to better ways to prevent, detect, and treat MDS in the future.