Neuromuscular Support

Neuromuscular support group for young adults

Welcome to an informal social and
connect group for people in their 20s/30s with conditions affecting
walking, balance, coordination or speech - a chance to meet up and
chat with people with similar experiences.

The aim of this group is to connect
people with neuromuscular conditions for informal peer
support. We will also hold webinars facilitated by health
professionals every few months on topics suggested by group
members. Stay tuned for the first webinar in late July! Topics can
include issues such as: How or when do I tell others about my
condition? Will my symptoms get worse? Living with uncertainty
about the future. Coping with physical dependence on other people
including parents.

This group is open to anyone with a condition affecting the
muscles and nerves, such as ataxia, hereditary spastic paraplegia,
spinal muscular atrophy, Charcot Marie Tooth syndrome, muscular
dystrophy, mitochondrial conditions and other rare conditions of
the nerves and muscles.