Mail online Sophia Mirza piece

I believe this will be published in the Mail on Sundays YOU magazine tomorrow . The article has just appeared online .

http://www.dailymail.co.uk/home/you...hters-losing-battle-ME-She-went-hellhole.html Comments (0)
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Aged just 32, Sophia Mirza lost her life to ME the first time the condition was recorded as an official cause of death in the UK. Here, her mother talks to Louette Harding about Sophias excruciating final years and the torment they suffered at the hands of a health profession that didnt know how to treat her illness

hard to believe that no lessons have been learned from this . sophias story should have put an end to how me/cfs patients are treated in this country ...... maybe just maybe one day it will and sophia will finally be able to be at peace

Following [Sophia's death], Criona complained to several professional bodies. The independent investigating officer, upholding some of Criona’s complaints, wrote that her letters and transcripts of conversations show Sophia to be 'intelligent ... …coherent…with no obvious sign of mental disorder… That her decision to turn down treatment was very uncomfortable for doctors does not invalidate her right to make that decision.’

Brilliant article. As you can see my sig is a quote from Criona Wilson (Sophia's Mother). That article gave me another one:

If people in high places say things, they expect others to believe them, and others believe them because they dont check, and then it becomes the so-called truth. And ultimately, my experience is that when something goes wrong, people dont ask, How can we make it right? They just close ranks.

It's dreadful and so sad. You read stories like this and can't believe there isn't more recognition. It's also frightening to realize just how serious this illness is. It's scary. I will never get used to it and especially because as serious as it is, no one takes it seriously.

We will never forget Sophia Mirza and her mother is to be commended for continuing to shine a light on this tragedy and for being willing to speak up and be heard about this terrible injustice that was done to her daughter. Every time I read about this Sophia's story it gets to me. Her mother did everything right and completely supported Sophia in the way we all wish and need to be supported.

All of those who suffer from severe ME or have been in the severe stages of it know what a Godsend it is to have someone who is willing to accommodate our needs in the same manner that Criona treated Sophia. I have complete respect for Criona.

Rest in Peace Sophia. You were valiant and beautiful and deserved better treatment from your government and from your doctors. I can only hope and pray they learn from your life and from your tragic death.