My child suffers from Trigeminal Neuralgia

My son, Garrett, began dealing with a nightmare called Trigeminal Neuralgia (TN) when he was 8 years old. He began complaining about his ears burning and I could visibly see they were red hot. We went back and forth to the pediatric Dr. checking for infection. The answer was always NO infection. When Garrett was 11 and starting 6th grade (Middle School) his ear pain hit with a BANG and never went away. We were referred to an ENT and after Cat scans and MRI with contrast; he was referred to a Neurologist with a possible neuralgia. I spent the next several weeks researching all types of Neuralgia and before we even saw the neurologist I was pretty sure he had TN. By this time he had numbing and burning on his face he describes as someone holding a lighter to his face.