"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

IBRF Visits Tomorrow. UTI Update.

Tomorrow will be a “hold on to your hats” sort of day. It is going to be the busiest I can recall in some time. It’ll be everything Ryan always does, to include the three hours of hyperbaric oxygen treatment (HBOT) and one hour of neuro-feedback, plus the International Brain Research Foundation (IBRF) coming for their periodic in-home neurological assessment later in the day.

Crazy busy!

Visual Testing during qEEG

A big part of the assessment includes a qEEG (quantitative electroencephalogram). We use this to gauge if there is measurable improvement in Ryan’s brain activity, compared to past results. The last one was somewhat disappointing so I can only hope it was just an off day for Ryan and tomorrow’s will be better. Yet, we’ll need to wait a few weeks for the raw data to be compiled and put in report form.

My thought hope is for Ryan to perform better since his complete removal from baclofen, Perhaps it might increase alertness? Also, since the last assessment I worked with IBRF two to three times a week conducting neuro-feedback sessions with Ryan. It would be wonderful if one, or both, helped him progress.

UTI Update

Ryan is now 5-1/2 days into his 2+ week course of intravenous antibiotic. We did a quick-dip urine test and it was free of any indicators of infection (mainly leukocytes and nitrates). This is a good sign, but we must wait a week or so after he finishes the treatment to do a full-blown urine culture. This will be the only way to know for sure that we knocked it out.

Comments

Ken,Sounds like a real busy day!Hope the IV is knocking out the UTI for good.Praying for some change in Ryan’s brain activity. Also hoping Sue feels better and know I am always thinking of you all and wishing for the best. Stay strong and hope you find some calmness and relaxation in this oh so busy day. Say hello to Ryan and give him a big hug from me. Love Gail

I’m praying Ryan’s progress shows up in positive measurable results for IBRF to see. Did the last set of tests not show any improvement? Ryan sure looks good, and I am hopeful with his UTI under control, combined with all the therapies you continue to administer, the results will be favorable.

Keep doing what you’re doing, Ryan looks amazing because of your daily hard work and commitment. You are a uniquely strong human being….in physical strength, mind and devotion.

Praying you have a good day with a big dose of sunshine for good measure.
Love, hugs & many prayers for favorable results tomorrow
Paula

Hope all goes well with the IBRF tomorrow, and that Ryan will show signs of improvement. We will be waiting to hear with as much patience as we can muster. We are an impatient bunch, huh! We want to know every little detail now, Kenneth. 🙂