Thursday, June 28, 2007

So, John and I are, like, still in Hershey. He is having more tests done. Dr. Claxton wants to know where the fevers are coming from. Even though they are not occurring now, Dr. Claxton doesn't feel the issue is resolved, so we have to stay around the hospital at least until Friday night so John can take more tests.

It's been a strange week. On Monday we were told we could go home, and then when we almost walked out the door we were asked to please not leave, so John could get additional tests done this week. I like it better this way, because we would have just had to go home, and come back in a week for John to do the tests anyway. But still, I am ready to go home.

There is nothing new here, really. Other than medical tests, and cleaning, there is not a lot to do here. Neither John nor I are driving here in Hershey right now. My narcolepsy is still not under control well enough; I don't feel comfortable with driving long distances yet. And John isn't feeling his best either. Neither of us were even able to get the car up here. So we can't go too far, and sit around the Lodge a lot. I am really going to be glad when my neurologist adjusts my narcolepsy medicine.

I almost never get bored and I actually got bored today, LOL. I was actually sitting on the couch singing a "Bored as a Gourd" song, LOL. I told John that I can't imagine that we stayed here for 10 weeks after his bone marrow transplant. And I think there were other times we stayed here as long, or close to it. How did we do it???

I guess I am just longing for home, and a "normal" life. Whatever that is. I can't really remember. Normal, just for a few days. Just for a little respite, LOL.

I am saying this because I think John may have some more treatment in the days ahead, for side effects of the transplant. They doctors don't even know where the fevers are originating from and are throwing out ALL KINDS of ideas.

34 comments:

you poor thing you two have been through so much. I'm always praying for you. I hope they find out what is wrong with john and can help him. I hope they fix your meds right so you can stay awake. Hugs and love.

Oh! Dear it's so awful when one misses home.You were probably too engaged in your thoughts and prayers of getting John well when you were there for 10weeks.Time goes so quickly.I hope you are both soon sorted with whatever the doctors need to find out for you both and you can be back home as soon as possible with your kittty.No place like home is there? Prayers being said.Take Care God Bless.

Krissy, I understand your longing for normalcy. Boy, do you need it. I also think you need answers about the reason(s) for John's fevers, & I pray that the doctors can give that to you. I don't know how you do it, you have spent so much time away from home. I really hope your narcolepsy medication gets adjusted so you don't have to deal with that, and it would be WONDERFUL if you could drive again. I bet you do miss your kitty, I would miss my dogs the same way. Oh, Kirssy, most people gripe when they have a normal life about things, but your life has been handed so many obstacles, that you just want "normal." All of us want you back, but with some of your questions re: John answered & your questions about your narcolepsy medications somewhat settled. I miss you to pieces, Krissy. Big (((((((((((((((((HUG))))))))))))))))))))))))))))))) Merry

I think that the fact that you are bored is a GOOD thing! When you spent so much time at Hershey before you were so worried, scared and concerned that you didn't have time to be bored.... Therefore, boredom is a good sign that John is doing better. LOL! Never though boredom was a good thing, did ya??

LOL I can hear your Bored as a Gourd song... you silly girl... you guys will be home soon. I loved what you put in the Gazette, honey. You made me teary. So, call me if you need me and go give John a hug and kiss when you can. I LOVE YOU!!!! xoxhttp://journals.aol.com/valphish/ThereisaSeason

Know it's not easy having to stay there, but John's fevers need to be checked out, thankfully sounds like he has good medical folks there. Like all of us, you wouldn't want to be any other place, but understand missing being at home and in your own environment and being to do what you want or just relaxing.....it's hard being away from the homefront. Hope they get your meds adjusted soon Krissy. You and John always are in my special prayers.....hang in there dear..Arlene (AJ)

Hang in there hon! I know it's hard being away from home, but the more test they do the sooner they can figure out how to help John. Keeping you both in my prayers on the smoke that soon you can return home! (Hugs) Indigo

I can imagine how bored you must be but it is all for the best Krissy as you say. Rather have all the tests now and get to the bottom of it all than go home and then have to go back. That day will come, what a day of joy that will be. Keeping you in prayer.

Krissy, I know you are bored and want to be home with Michael. You two have been through so much but all this will soon be in the past and John will be well and your sleep meds will be adjusted just right and you can live a normal life. You and John are such a inspiration to me. My prayers are always with you. Love and hugs to you both. Love Myke

I'm sorry this is soooo hard and you and John.I wish things would hurry up and go back to normal.I went last week and tried to give blood again--it's my 3rd time--I was hoping it was going to be a charm--but I was unable to because of my iron count--I was soooooo irritated.I took my Dad with me though--and he gave a pint.I will keep you both in my prayers!!!!!!!!!!!!!!!!!!!!!!!!

Best wishes to you and John Krissy! I'm sorry you have had to stay in Hershey. It will make going home all that much better though. Absence makes the heart grow fonder, I think. I hope you are having a nice weekend. Love, Shelly

Hi Krissy- even through your agrivations- you still make me smile (bored as a gourd!) I do pray they will eventually figure it out and John will be able to get better. I pray you guys will be able to go home soon and STAY HOME! I guess Michael misses you as much as you miss him- but he might get a little annoyed by your absence. I know my cat used to get that way whenever I had to leave for a few days even. God Bless you both- you're always in my thoughts too! Carolyn :)

i cant imagine how it must feel to be away from home for that long. at least they are still trying to figure it out and not just saying ok its over you can leave now. it has been a tough journey for both of you up till now and you just manage to keep on going strong. my prayers are still going up for you. i have faith that things will work outhugs noelle

I asked the readers of SIT what the most unique item was in their purse or wallet. The answers are listed below. Now we'll find the most unique answer among everyone! Please choose ONE answer, and don't choose your OWN! All can play!

Subscribe by Reader

submit your email address to receive my posts by email

a little about me...

Hi, I'm Krissy. I'm just your average girl. I love blogging, Twitter, almost all Social Media, digital photography, fundraising to fight cancer, designing and making jewelry, watching Claymation Christmas specials -- just working hard and playing hard! I also love my husband John, and maine coon cat Michael. But most of all I love Jesus...
Please visit my main blog Sometimes I Think