Remembering Paige Myers, FARA Ambassador

On Friday, September 1, 2017, my good friend Paige Myers passed away from complications of Friedreich's Ataxia at age 22. I first met her two years ago as we were both FARA Ambassadors. The Ambassador Program meant a great deal to Paige. Anyone who knew her knows she had strong principles and big goals. She was a passionate advocate for the FA community and the community of people with disabilities; headed to become a pretty incredible genetic counselor. I have huge respect for Paige and all of her accomplishments.

Paige was a such a beautiful and smart woman taken way, way too soon. The time with her I will never forget was at the 2016 Philly FA symposium (my first). I went from table to table meeting and talking to all of my new FA friends, yet she was the only one who came up to me to talk. She truly made me feel special. My love goes out to all of her family and friends.

Paige will be missed but absolutely never forgotten. Despite my own failing heart, I promise to fight this disease and to try to live vibrantly to the end, just as you did.

About the Author

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.

Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.