An estimated 50,000 people die from IPF in the U.S. each year, more deaths than from breast cancer. (See source study.) This statistic does not include the high percentage of people who are never diagnosed. See graphic below. Experts agree that we don’t know the extent of deaths and that more research is needed.6

“If micro-organisms are triggering and/or sustaining the disease and we are able to figure this out, then a cure should be in sight.”

– Dr. Jerry Eu, Former Director,Immunology/Fibrosis at the NIH (2016)

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Mortality Rate without a lung transplant

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Die within 5 Years of Diagnosis

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Die within 2 Years of Diagnosis

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Percentage IPF is initially misdiagnosed

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Percentage of Commercially Available Diagnostic Tests

The IPF Foundation is an independent, nonprofit organization founded with the mission to accelerate cures for IPF. We are the only organization that gives 100% of your donation to IPF research.

We supported the CleanUP IPF trial, the first pragmatic trial in IPF and the largest, single, NHLBI sponsored IPF trial. Once completed, researchers will utilize new technologies and platforms to analyze the collected data and biological samples. Learn more.

What is IPF?

Idiopathic pulmonary fibrosis (IPF) is a progressive and generally fatal disease characterized by scarring of the lungs that thickens the lining of the lungs, causing an irreversible loss of the tissue’s ability to transport oxygen. IPF ultimately robs a patient of the ability to breathe.– NIH National Heart, Lung, and Blood Institute

Could a green tea extract reverse fibrosis?

UC-SF pilot study may provide an ethical basis for a long term clinical trial according to the New England Journal of Medicine. Learn more.7

Add your name to join the community working to end idiopathic pulmonary fibrosis.