No state includes all potentially fatal, but treatable,
diseases in its Newborn Screening Program. Currently, New York, Missouri, and Kentucky are the only states that screen newborns for Krabbe Disease.

With your help, we can save babies’ lives by ensuring that Every Child. Every Time. Everywhere.™ is screened for every possible disease, including Krabbe, at birth.

Take Action to tell your state lawmakers why Expanded Newborn Screening should be a
reality in all states. Ask your friends, family - everyone you know to do the same. Be the voice for those who have none.

Take Action for Newborn Screening

Take Action!Help us advocate for Expanded Newborn Screening in Every State.

Ask your state lawmakers to increase the number of diseases that your state screens for at birth.

New alerts will be added as opportunities for
expanded newborn screening arise. If there's activity going on in your
state, we'd like to help - please let us know by emailing
unbs@huntershope.org.

How Early Detection Saved Zoey and Michael's Lives
Michael and Zoey both received a tranplant for Krabbe Disease just after birth. Their lives were saved because their older siblings were also affected by Krabbe Disease, giving them the chance for early detection and treatment that every child deserves.

By taking action in your state, you can help ensure that every child has the same
chance at life as Zoey and Michael.

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11