Join the Lupus Foundation of America as we continue down the road to finding a cure for lupus.

March 04, 2013

Editor’s Requests for Summer issue of Lupus Now magazine

The Editor of Lupus Now® magazine needs your help with the Summer 2013 issue.

Ultraviolet light and lupus
Has lupus caused you to become sensitive to artificial indoor lighting? If so, we would like to talk to you. Write to us at lupusnow@lupus.org, with "UV" in the subject line. Please include a little bit about how UV affects you and how you cope, along with your name, location, and telephone number.

Lupus Blood Disorders
June is Antiphospholipid Antibody Syndrome (APS) Awareness Month. If you have lupus and APS, or if you have had other blood disorders due to lupus, we would like to talk to you. Write to us at lupusnow@lupus.org, with "blood" in the subject line. Please include a little bit about your history of lupus, along with your name, location, and telephone number.

Sisters with lupus
If you have sisters with lupus in your family, we would like to hear from you! Write to us at lupusnow@lupus.org, with "sisters" in the subject line. Please include a little bit about yourselves, along with your names, locations, and telephone numbers.

My View column
In recognition of National Inventors’ Month in August, what would you invent to make your life with lupus easier? Send your idea, in 30 words or less, to lupusnow@lupus.org, with "inventions" in the subject line. We’ll print as many as we can in the Summer magazine, and post the rest online at lupusnow.org.

Thanks so much—without all of you, there would be no Lupus Now magazine!

My 17yr old daughter was diagnosed with Lupus 1 year ago this coming March 20, 2012. Her condition is very severe and rare. She does not have a sister with Lupus, but her Aunt (My sister), her Great Grandma (My Grandma) and a 2nd cousin (My cousin) all have Lupus. I am her mother by the way. Lupus did attack her blood, so she does have a blood disorder now. it also attacked her Kidneys, joints and vision. How do I share her story with you?

Lupus Foundation of America

The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact. Have questions? Email us at yan@lupus.org