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I am 19 years old and I have had 12 surgeries. I have Chiari Malformation, Ehlers Danlos Syndrome, Tethered Cord, Inter Cranial Hypertension, Mast cell Activation Disorder, Interstitial Cystitis, POTS, Chronic acute Mono and Cranial Vertebral Instability. I was granted a Make-A-Wish trip in December 2012. I have an amazing support system and the best docors around. Ask me any questions or give me any advice you may have.