Friday, 29 April 2011

Stop and smell the roses

This week we've gotten news that Diver Dude's heart is broken. It needs fixing. With lots of medication, electric shocks and hope.
He's been diagnosed with atrial fibrillation and dilated cardiomyopathy after having felt run down for several months. Basically his heart is beating irregularly and his left ventricle is dilated and not contracting properly.
It scares the living crap out of me.
I lay awake last night after the four o'clock feed listening to my two boys breathe next to me wondering how I could continue breathing if one of them weren't there.
Every moment together is precious.
Holding hands while brushing our teeth.
Laughing together when Bubba reaches for his toes.
Sharing a knowing look when hearing something we don't agree with.
We need to stop and smell the roses. And hope we have many, many moments left together.

O my dear Circus Princess, how impossible... I was thinking that for you the endless hospital visits would be over and you could 'just enjoy' being a mother. And then, life twists again. Wishing you hope for (against) all things scary.hugs.

So sorry to hear about this. Hoping they are able to control his a-fib (we have a very good friend who has had, from a very young age, a-fib and has to take precautions (limit alcohol) but does very well.) Don't know how the cardiomyopathy plays into this, but hoping they can get him better.

I'm really glad they figured this out prior to something more serious like a stroke. There are quite a few people with AFIb, and some very good medications. I don't know about the ventricle issue, but I'm so thankful you found it now. Good luck.

hey princess. i know you have lots of hope and i know you believe in miracles after all you have been through. so keep up your hope and let the shocks and medicine do their job and hopefully you will end up with a better-feeling energetic diver dude who can fully enjoy his young son. You are in my prayers!

PLEASE

Current Status

37-year-old swedish/american woman married to 52-year-old Diver Dude. With a diagnose of azoospermia and a range of female reproductive challenges we went through one fresh IVF that resulted in an early miscarrieage and two failed FETs but had a miracle happen while gearing up for IVF numero two. On February 27, 2011 we welcomed Bubba to the world and our family. A few months later Diver Dude was diagnosed with Atrial Fibrillation and Dialated Myocardia and we moved back to the US after three years in England to get him the care he needs. Currently busy chasing a very fast baby, unpacking boxes, painting walls and making sure my husband takes his heart medication on time.