Our daughter Hailey was diagnosed with Leukodystrophy in 2011, a terminal brain disease. There is no cure or treatment. In January of 2015 she had a Pacemaker placed. There are medical bills, prescriptions not covered by insurance, Dr. Appointments out of state, and surprise expenses that would take a toll on any family. One way to share our story is to share jewelry we created together. There are many places we want to take her.
Each necklace signifies a Hug for Hailey.

Saturday, February 23, 2013

Disneyland - Extra Pictures

I have some extra pictures to post and wanted to make sure I got them in. These will be the last photos for our Disneyland trip. 4 posts for 2 days, I can't imagine how many posts we'll have from the make a wish trip...

Here we go:

Hailey's School aid and I worked together to make Hailey these Disney Shirts. They really turned out GREAT!! Ms. Sallie helped with the embroidery and I did the iron ons.

I loved how they turned out and we can even use them again when we go to Orlando!

Did you know that there is a place in Disneyland that you can buy a coffee for $2.99 and get FREE refills ALL DAY LONG?!?! Too bad I am not a coffee drinker. Inside you can also pick up these old fashion phones and listen to the Party Line. If you listen to the whole things it's really pretty funny. Long story short there is a lady calling the fire department because her barn is on fire and when the fire department asks for an address the lady keeps saying it's the only barn that's on fire in the small town. I told Josh to listen but he didn't have patients to hear the whole thing.

One of my FAVORITE types of Candy....TAFFY!! It's the only thing that doesn't cost a fortune either.

So happy after meeting the princesses. Josh was awesome enough to take Hailey back to the hotel to change a poopie diaper and let me go on Star Tours with my niece. It's her favorite ride.

I don't know if this bear is really carved out of real wood. Most likely not but if it was...HOLY cow.

I got a picture of this duck. They just wander the park and eat the dropped popcorn and such. I was hoping to spot a cat. Fun Fact: Did you know that Disneyland releases over 200 cats on to the park at night to help control the rodent population. I did see a cat but it was at Downtown Disney.

These are the Bear Brothers from Brave. They were voice activated to Merida when we met her.

I really wanted to stay to watch Minnie's Fly Girls but they had LOUD jet airplane sounds that Freaked Hailey out. It sounded like a plane was going to land on you.

I thought this was cute. My Joshua won't wear Mickey Ears. So this is as close as we'll get.

I saw this and I HAD to have it. It's a Chocolate covered caramel coated Minnie Mouse Apple. It had marshmallows for ears and a chocolate bow. It was $10.00 but it was SO worth it. YUM!!!! They also had ones that looked that Jack from Nightmare before Christmas. It was cute but not as cute as this Minnie Mouse One!

Hailey's goodie bag from the boutique. They put a hair brush, and left over makeup in it.

Flo's V8 Cafe...So Cute!!

Inside the track of the ride that was closed.

I am so glad we were able to have these memories with Hailey and share them with you. Thank you to Sasha and Olivia for coming out and surprising us. Having you guys with us was so awesome. We know it wasn't easy or cheap. Thank you to everyone who bought Hugs for Hailey necklaces and helped us take Hailey to Disneyland. We appreciate it so much! Thanks to the cast members at Disneyland who helped us with what ever we needed and who also went above and beyond for our little girl.