A matching donation in Joy’s honor was also made in the amount of $1,000. The Foundation sincerely thanks Joy and her anonymous matching donor for their generosity. To learn about Joy and her work to raise MdDS awareness be sure to watch her segment on The Doctors TV show which aired on April 25.

We’d also like to take another opportunity to thank Mia and CC’s Cupcake Heaven for raising $1,300 for the MdDS Foundation through a special Rare Disease Day event. You can see photos and details on her Facebook page. These funds will help support much needed research and education efforts.

As June Awareness Month (JAM) approaches, please consider what you can do to help the Foundation advocate for you.

To make a donation “in honor of” or “in memory of” designated individuals or occasions, please complete the Memorial or Honor Donation Form (downloadable PDF) and mail to: MdDS Foundation Marilyn Josselyn, President 22406 Shannondell Drive Audubon, PA 19403 Alternately, you may use Pay Pal or Click and Pledge, and use the comment field to leave your donation dedication. Your dedication will be recognized in our next newsletter and acknowledgement post.

In Memory & Honor Donations was last modified: August 11th, 2017 by MdDS Foundation