The Rett syndrome, MECP2 Duplication, and Rett-Related Disorders (RTT) Consortium is a newly developed RDCRN consortium extended from the previous activities of the Rett Syndrome Natural History Study.

You (or your child) are invited to join the international RDCRN Contact Registry for patients!

The RDCRN Contact Registry is a method by which patients with rare diseases and their family members can register with the RDCRN in order to be contacted about clinical research opportunities and receive updates on the progress of the research projects. The RDCRN Contact Registry is anonymous and free of charge.

The RTT (U54HD061222) is a part of the Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research (ORDR), NCATS. This consortium is funded through a collaboration between the NCATS and the NICHD.