selecting site investigators for the study. Participating site investigators for a trial should be selected from the current EHDN listing of qualified investigators who request participation in EHDN trials

removing from active trial participation any steering committee members, investigators or other study personal who does not fulfill his/her obligations to the trial or who does not maintain the standards of EHDN with respect to confidentiality, professional conduct, rights of research subjects, conflict-of-interest, disclosure or publication policies.

fostering recruitment into REGISTRY

developing the protocol of REGISTRY further

assisting the PI and Co-PI in the implementation and proper conduct of the trial

collaborating with the Scientific Review Committee (SRC) of EHDN on approved EHDN projects using data and materials generated through REGISTRY

Members of the steering committee – as all members of EHDN – are entitled to hand in proposals

GeneralThe task at hand calls for

clinicians of same standing in the position to foster recruitment
into REGISTRY i.e. senior physicians, well respected in their respective
region of origin

geneticists to develop the family history component of REGISTRY and
to inspire genetic studies on the DNA collected

scientist or clinician/scientist to develop the biomarker component

Structure

Principal investigator (PI) and Co-PI

Members according to the criteria as defined above

CHDI Foundation (Inc.) representative

AppointedServing as long as REGISTRY is an
active trial unless member resigns