Cancer Survivors Network - Comments for "Just came from second opinion at Sloan Kettering MMT carcinomasarcoma"http://csn.cancer.org/node/247840
Comments for "Just came from second opinion at Sloan Kettering MMT carcinomasarcoma"en-csnSame herehttp://csn.cancer.org/node/247840#comment-1308650
<p>I had polyps and ended up with cancer too... so be careful.<br />
JanH</p>
Mon, 26 Nov 2012 20:02:38 +0000janh_in_ontariocomment 1308650 at http://csn.cancer.orgThat is great news on Kelly!http://csn.cancer.org/node/247840#comment-1308398
<p>That is great news on Kelly! Hoping she continues to do well!</p>
<p>I agree with Jan-in-Ontario though about the polyp. Would you consider a complete hysterectomy? I know, it's drastic, but I had much the same, just a polyp,bleeding,into menapause,no big deal. Fast forward a few years and while polyp is still the and inflamed, next to it and on it...UPSC. I begged for a hysterectomy from the first, but no, "healthy organs", ect. Probably no connection, but Had I pushed it would have saved so much. I know it may not be correct but I am of the school of"if you don't need it and it's giving you trouble, get it out"! Ok, I'll stop preaching and let you enjoy your good news! Best, Debrajo</p>
Mon, 26 Nov 2012 01:17:54 +0000debrajocomment 1308398 at http://csn.cancer.orgWatch the polyphttp://csn.cancer.org/node/247840#comment-1308213
<p>I am so happy it was just a polyp - but be warned polyps turn to cancer so make sure they remove the polyp and that you continue to get regular checkups including trans-vaginal ultrasounds to ensure no future polyps form.<br />
Wonderful to hear someone has escaped this nightmare!<br />
JanH</p>
Sun, 25 Nov 2012 16:28:30 +0000janh_in_ontariocomment 1308213 at http://csn.cancer.orgResults Benignhttp://csn.cancer.org/node/247840#comment-1308165
<p>Yeah, it was just a polyp 1 cm wide, 2 cm long, everything else looked great. </p>
<p> Kelly is having third chemo this Thursday, still going strong, no real symptoms, food taste fine, very few aches, has not needed anti nausea mess. Her blood work did show that she needs to avoid crowds and stay at home more, so she did not go to the mall and will not go to church today, but overall she could not be more pleased. Thanks for the heads up on the rest Jazzy, I always encourage her to listen to her body, but will remind her again after Thursday. she has always had a whey shake for breakfast, and continues to do that, she also drinks a ton of water and some recommended juices everyday.</p>
<p>Thanks,<br />
Nicki</p>
Sun, 25 Nov 2012 13:48:44 +0000Teamkellycomment 1308165 at http://csn.cancer.orgResults Benignhttp://csn.cancer.org/node/247840#comment-1308164
<p>Yeah, it was just a polyp 1 cm wide, 2 cm long, everything else looked great. </p>
<p> Kelly is having third chemo this Thursday, still going strong, no real symptoms, food taste fine, very few aches, has not needed anti nausea mess. Her blood work did show that she needs to avoid crowds and stay at home more, so she did not go to the mall and will not go to church today, but overall she could not be more pleased. Thanks for the heads up on the rest Jazzy, I always encourage her to listen to her body, but will remind her again after Thursday. she has always had a whey shake for breakfast, and continues to do that, she also drinks a ton of water and some recommended juices everyday.</p>
Sun, 25 Nov 2012 13:48:03 +0000Teamkellycomment 1308164 at http://csn.cancer.orgTeamkellyhttp://csn.cancer.org/node/247840#comment-1304417
<p>Sounds like with your issue it might be nothing. Like the idea of thin uterine wall, as in many cases when our cycle stops the wall gets thicker. Plus your doc sounds quite positive it's benign...ride out the positive vibes from doc.</p>
<p>Kelly sounds a lot like me...always moving and ready to keep a normalcy. But...with me I learned quickly from an RN oncology friend we need time to rest...especially for few days after chemo. Our bodies are bombarded with toxins and fighting cancer, then adding on lots of fatique with workouts... hard to recover. Our bodies can only do so much...best to keep it strong to fight the cancer battle. Suggest as well taking whey protein powders and drinking lots of fluids. The chemo breaks our systems down and the protein and water help keep it fluid and strong. </p>
<p>I was a big workout gal and simply learned to take 3-4 days after chemo to rest. If I felt up to it, walk a bit outside for some fresh air and change of scenery. </p>
<p>CA 125 is a tumor marker and not everyone can use for guidance. Luckily in my case doc can as it was very high priot to chemo 550 and after EACH chemo it fell and stayed at the low of 4-6. But...as with anything we still follow other tests/scans.</p>
<p>Keep your chin up as sounds like things are falling into place for both of you. Who said life would be easy?</p>
<p>Hugs,<br />
Jan</p>
Tue, 13 Nov 2012 21:55:59 +0000jazzy1comment 1304417 at http://csn.cancer.orgNo results yet, but had procedure/ Kelly had 2nd chemohttp://csn.cancer.org/node/247840#comment-1303783
<p>I saw the ob/Gyn on Tues. He did a vaginal ultra sound himself right in his office, saw a 1 cm polyp, scheduled me for an outpatient surgery center on Thursday and He went in with a camera looked all around, removed the polyp (it had a stalk) it was 1 cm wide, 2 cm long. I will get pathology back on this Thurs or sooner. He said my uterine wall was thin and everything else looked good. He told me that 97% of the time these are benign, he said the cramping was coming from my body trying to expel it, which must be true because that has pretty much stopped, but my stomach looks like I swallowed a pumpkin, guess that is the air/gas they used, he could only see one of my ovaries with the ultrasound and it was very small, which he said was good, oh, he also,did a PAP.</p>
<p>Kelly just had her second chemo and her joints are really aching, she is still walking everyday and works out with her trainer twice a week, I told her to try 3 Motrin and hot tub or bath, do any of you have more suggestions, she had her treatment on Thursday, no nausea, very little constipation, she says the pain level is a 5, I told her maybe she should not work out with trainer this week (she does weight machines to fatique) and just walk. The lab sends me all her lab reports and of course her numbers were starting to drop right before this round, still waiting for CA-125 but not sure how important that is with MMT/carcinomasarcoma.</p>
Sun, 11 Nov 2012 22:51:25 +0000Teamkellycomment 1303783 at http://csn.cancer.orgHad did your appointment go?http://csn.cancer.org/node/247840#comment-1302632
<p>Nicki,<br />
How did your appointment go? Do they have the results of the biopsy yet? The only problem I have witha a biopsy is, the dr may not hit the right spot to get the sample. Praying that all does go well with you and you get good results. Glad to know that Kelly is doing ok with the chemo. trisha</p>
Thu, 08 Nov 2012 15:27:56 +0000txtrisha55comment 1302632 at http://csn.cancer.orgThank you for your statementhttp://csn.cancer.org/node/247840#comment-1302459
<p>Thank you for your statement Beila! I so wish my doctor would have had that stance. I was only 38 and healthy, so she let me bleed profusely for 9 months. I just didn't have the word biopsy and kept trying different birth control pills. Luckily she finally did a biopsy but continually told me there was not way it was cancer. It was. </p>
<p>I know doctors are only human, but a simple biopsy may have saved me so much heartache. So, again, thank you for being outspoken.</p>
<p>Rachelle</p>
Thu, 08 Nov 2012 02:36:27 +0000Shell bugcomment 1302459 at http://csn.cancer.orgOopsiehttp://csn.cancer.org/node/247840#comment-1301076
<p>plse excuse this mis post</p>
Sun, 04 Nov 2012 03:32:52 +0000jazzy1comment 1301076 at http://csn.cancer.org