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Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and

how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Thursday, October 20, 2011

Worth the wait?

I waited 2.5 hours before I ever saw Dr. Owen Oconner. I'd been warned about his chronic lateness issue prior to ever meeting him, prior to ever accepting him as a doctor. This flaw is an imperfection I am willing to allow, especially since his tardiness is probably because his genius brain wondering, hopefully closer and closer towarda finding the cure for cancer (okay,okay, maybe I'm fantasizing a little). In my experience the best in the business will be late. They assess thoroughly, which means slowly. They take time to reassure patients and answer questions. This is a problem I'd been warned about. All the little tricks I know to reduce wait times I've tried and they failed such as getting the first appointment of the day or scheduling for right after lunch knocked some time off failed too. But those three hours were worth it when he came in, and after a quick recap of my history, announced that I could stay on Adcentris for an entire year and may see the positive benefits for years!! He canceled the pet scan scheduled for mon, pushing it back two weeks so we can see the effect of all four treatments. Having the scan on mon. Would only show the effect of three. From there he started talking about other complementary options stating that he wanted to keep my away from "chemo junk.". My heart melted. I've found a doctor that gets what I want. He even has a contingency plan for the scary "what ifs.". Doctors before all wanted to "take one step at a time" or if I was in remission they wanted to "what and see.". I hate being forced to allow cancer to grow in me with no plan. Not this guy he probably has back up plan upon back up plan, and if giving other people the same was what made him rhree hours late,I'm okay with that. Sent from my Verizon Wireless BlackBerry

Yeah, the wait is really long! I've waited over 4 hours before, just had to roll with it. He put me on one of his creations and while skeptical, I got a year out of it when I was thinking I'd be lucky to get a month (saha/niacinamide). Anyway, glad to hear you're doing well! Keep it rolling :)

I'm A CAUSE!

I'M A CAUSE!

RELAY FOR LIFE 2012!

THIS YEAR IS GOING TO BE A FUN FILLED TIME WITH LOTS OF DIFFERENT EVENTS BEING DONE BEFORE THE ACTUAL RELAY AND THEN EVEN MORE AT THE RELAY EVENT.. WE ARE GOING BIG JUST LIKE HILLARY WANTED. WE ARE HER LEGACY NOW, WE ARE HER WORDS AND LOVE. LETS CARRY THIS ON IN HONOR AND MEMORY OF AN AMAZING ULTIMATE GIRL FIGHTER AND FRIEND HILLARY ST. PIERRE- FORD :) HOPE TO SEE YOU ALL THERE :)

Biography

Hillary St.Pierre received her BSN in nursing, practicing as a critical care and emergency department registered nurse and researching the differences in health care among social classes in Harlem prior to her diagnosis with Hodgkin's disease in 2006 at the age of 23. She has chronicled her battle with cancer and health care on her blog: baldiesblog.blogspot.com, which was listed by The American Cancer Society among The Top Ten for patient written cancer resources. As a Professional Patient she has advocated with The American Cancer Society, Citizens Health Alliance, and Working Families Win. She has contributed politically as a stakeholder for NH Department of Health's Health Information Exchange working towards creating an electronic medical record system. She is a lifelong New England resident, wife and mom. Hillary continues to battle lymphoma alongside fighting for improvements in healthcare.

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Z and The Cancer Meanie

Z and the Cancer Meanie," follows the young Lion Z along on his family's adventure of being diagnosed with the cancer meanie. Together, they learn about doctors, hospitals, tests and the Meanie itself.

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