Languages

Countries of use

Cost

Developer

Funder

Medical Adviser

Features

Allows networking with other people like me / Family / Friends Reminders Support to deal with symptoms/disabilities Self-monitoring Trackers Information

Summary

The app was developed as a result of a competition run by the US patient organisation, VHL Alliance.

Von Hippel Lindau (VHL) disease is a genetic condition characterised by blood vessel tumours in up to 10 parts of the body.

The app is designed to help people with VHL and their carers to:. Achieve a diagnosis, and follow Active Surveillance Guidance. Identify common symptoms and manifestations of the disease. Manage and coordinate appointments and treatment, often involving multiple doctors . Track appointments and treatments. Manage contacts in the care team. Keep up to date with news and events relevant to VHL patients. Find out about VHL, its diagnosis, symptoms and treatment.

Reviews

Reviewer: VHL Alliance Executive Director, Dr. Ilene Sussman. Review: “Taking our knowledge and putting it into action by educating patients, caregivers, and physicians is key to meeting our mission. This mobile tool is a spectacular new resource to address those needs, and is readily available as a free download via the iTunes app store. The VHL App is meant to complement our website, conferences, discussion calls, and other resources that seek to make living, managing, and thriving with VHL easier to do.”Source:http://bit.ly/2p3gn1wUsage: Not specifiedWeblink of reviewer:http://bit.ly/2oZwuNi

PatientView provides this website for use as information, or for educational purposes. We do not warrant that the information we provide on the website will meet your health or medical requirements. Contact a health professional if you are concerned about your health. Nor can we guarantee that the information we provide on the website will always be up to date or accurate. PatientView is providing details of apps recommended by patient groups, an act which does not imply PatientView’s endorsement of any app. PatientView is not responsible for third-party content. Read more for copyright considerations