Monday, January 31, 2011

Sweet little sweater

Finished the sweet little Manda Ruth and snapped a quick picture, it still needs to be blocked before I post a full shot but this should give you an idea of what an adorable sweater this became. I'm also working on the sweater for me I imagine that will be finished today or tomorrow and then I will probably move on to a pair of overalls and a zip up hooded vest for L.

February begins tomorrow and that means we'll be 15 days out from the surgery. V's behavior is out of control as always, and I really hope things calm down after the surgery. I've been a bit torn lately about writing about our journey and how much to discuss and show. I'm really sensitive to the fact that at some point V (hopefully) will be a typical kid and do something like google her name (or her friends will) and I don't want all of this to pop up for everyone to see, this is her story and her journey and when she is old enough she should have the right to decide who she shares it with. However, there are other families going through this and I know when we knew this surgery was coming I was hunting for other folks who were writing about the process and how they handled everything. I wanted to read as much as I could about everything, so on some level I do NEED to share this now without her permission. So I walk a fine line, that is why I never use her name, and why up until this point there are no pictures of her (although that will change I do plan on putting some pictures up soon). I want to post a few short videos of her seizures because I think folks need to see that seizures aren't always what we think they are, sometimes they don't really look like seizures at all. I do not want to perpetuate that idea that epilepsy and seizures are something to be hidden, but the idea of posting videos of V seizing makes me uncomfortable, it is a private and personal thing and I am not sure if I want to put that out for the world to see. As the surgery date approaches though I do feel the need to share a bit more about V so she isn't just an anonymous person having epilepsy surgery but a real child with real parents, real siblings, and real grandparents and aunts and uncles who care deeply about her.