Re: Ireland

Hi Sheedy,

I am friends on Facebook with a lady from Cork. I can give you her e-mail if you e-mail me for it. She is really nice. Her husband passed away from CC a while ago. She has three children. I don't remember if I met her on Facebook or on this site. If she was on this site, she doesn't post anymore that I have seen. I hope this helps.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Ireland

Hi SheedyI'm from Dublin and have been a member of this family for a number of years now. I don't get to write often but I check in regularly to see how everyone is getting on. I was treated at St Vincent's. Let me know if you need any assistance/advice.

Re: Ireland

Hi, thanks for the replies:) Gerry, my father was in st Vincent's too. He was diagnosed there. His doctor was mr hoti. He's seeing the Onc in limerick now and he's on this gemcytobine. I asked about cisplatin and they don't do it. I don't think much is going to be done for him in limk, I think they have him written off. The thing is, he had a really good baseline scan.. His liver is uninvolved. I dunno what to think. He's a kind of guy that will just accept what he is being told. Who is the Onc in Vincent's. do they offer more treatment there?

Re: Ireland

NiamhI was treated at Vincent's. Justin Geoghegan was my surgeon and David Fennelly my Oncologist - both very experienced guys. I had a whipples op 2 years ago and I meet Justin for regular check- ups. This is such a rare cancer and having experienced medical staff is an absolute requirement. I would suggest that you contact Justin directly at 01-2614016 for a 2nd opinion.

Being an Advocate for your Dad is very stressful but remember there are many members here who are on the same journey only too willing to share their experience - so come back often.

Re: Ireland

Emir Hoti went in to do the whipple but didn't go thru with it when he saw my fathers cancer had metastasized around the abdominal cavity. My concern is more the oncology side of it. He is being treated palliatively, and that's probably the right thing to do, but I just want to be sure. The oncologist we have in limerick is supposed to be excellent, but I think we should see someone else just in case. It's confusing me because there's nothing in his liver. It's only in his bile duct which was rerouted during surgery and "floating" around his abdominal cavity.

Re: Ireland

Sheedy, it doesn't have to be in the liver. Teddy's was in the bile duct valve then the Duodenum. Never got near his liver. 5 years of different treatments and it never went near the liver. It is your right to get another opinion on treatment and it will also put your mind at ease. Good luck and be strong!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHINGAny suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Ireland

NiamhI'm pleased you are happy with the care you're Dad is receiving at present. To put your mind at rest, I'd recommend you obtain a 2nd opinion. You may be with VHI or one of the other private insurers. VHI advertise a 2nd opinion service but I'm sure Quinn or Laya would also help.

Re: Ireland

Niamh-Mr Mark Taylor is the Consultant Hepatobiliary and Pancreatic Surgeon within Belfast Health and Social Care Trust. Ulster Independent Clinic is a private hospital in Belfast and you may be able to get an appointment through there.

The information expressed is not medical advice. The discussion boards are not intended to replace the services of a trained health professional or to be a substitute for the medical advice of physicians or other healthcare providers. Read the full disclaimer.