Legal Information

Who we are

The Pumping Marvellous Foundation is the UK’s leading patient led Heart Failure Charity in the UK and our registered charity number is 1151848 in England and Wales, our Scottish Charity registration number is pending. We are also registered as a company in England and Wales under registration number 08370761.

If you are under 18

If you are 18 or under, you must get your parent/guardian’s permission before you provide any personal information to us on this Website. If you do not have permission, you are not allowed to give us your personal information.

Dependence on information

We provide broad information about medical issues and treatments. The information is not formal advice and should not be treated as such. The information contained on our site or in any communication we may make, unless expressly stated to the contrary, is of a general nature and should not be relied on in place of professional, medical or other advice appropriate to your specific circumstances.

We accept no liability or responsibility for any loss or damage or other harm arising from any dependence placed on such information by the recipient of such information or any other person who relies on any of its contents.

Any information on this site should not be relied on in any court or similar proceedings as evidence.

Intellectual property

This website and content are protected by copyright laws and treaties around the world. All such rights are reserved. We are the owner and licensee and therefore have the intellectual property rights to our site and it’s content.

We allow you to print one copy and download information for your personal use including extracts of text. You may distribute and draw to the attention of others to material posted on our site.

You must not modify any printed papers, digital files or any other copies of any materials you have printed off or downloaded in any way. Regarding images, illustrations whether photographic or not including video or audio text must not be separated from the accompanying image.

As authors of material on our site must always be acknowledged. A copy of our brand guidelines can be found here and must be complied with.

No part of the materials on our site must be used for commercial reasons apart from with specific consent from the Trustees or CEO.

Do not print, download or copy any of this site and it’s content in breach of the terms. At our option we have the right to request a return or destruction of any copies of the materials you have made.

Information policy

All the information we publish whether online or offline and in whatever format, printed or digital – goes through a stringent checking process to make sure that as far as possible it is factually accurate and supported by research evidence.

We work with our beneficiaries to create a demand which is then written by patients and carers who either have a diagnosis or who have to manage with the effects of heart failure. This is then proofed and checked for medical accuracy by our clinical team and we consult external experts, as appropriate, on all information before publication, including:

Consultant Cardiologists

General Practitioners

Advanced Nurse Practitioners

Registered Rehabilitation Practitioners

Any information provided by The Pumping Marvellous Foundation is for general information only and is not intended to provide personal medical advice. We always suggest that you consult your own Doctor or Nurse on your specific requests. We do not replace any advice you are given by your Healthcare professional.

If you have questions or concerns about individual health please ensure you either contact your GP, specialist heart failure nurse or cardiologist. If you have any questions then please email angela.graves@pumpingmarvellous.org or dawn.robinson@pumpingmarvellous.org

Social Media and External Links

External Links

Although this website only looks to include quality, safe and relevant external links, users are advised adopt a policy of caution before clicking any external web links mentioned throughout this website. (External links are clickable text / banner / image links to other websites) The owners of this website cannot guarantee or verify the contents of any externally linked website despite their best efforts. Users should therefore note they click on external links at their own risk and this website and its owners cannot be held liable for any damages or implications caused by visiting any external links mentioned.

Adverts and Sponsored Links

This website may contain sponsored links and adverts. These will typically be served through our advertising partners, to whom may have detailed privacy policies relating directly to the adverts they serve.

Clicking on any such adverts will send you to the advertisers website through a referral program which may use cookies and will track the number of referrals sent from this website. This may include the use of cookies which may in turn be saved on your computers hard drive. Users should therefore note they click on sponsored external links at their own risk and this website and its owners cannot be held liable for any damages or implications caused by visiting any external links mentioned.

Social Media Platforms

Communication, engagement and actions taken through external social media platforms that this website and its owners participate on are custom to the terms and conditions as well as the privacy policies held with each social media platform respectively.

Users are advised to use social media platforms wisely and communicate / engage upon them with due care and caution in regard to their own privacy and personal details. This website nor its owners will ever ask for personal or sensitive information through social media platforms and encourage users wishing to discuss sensitive details to contact them through primary communication channels such as by telephone or email.

This website may use social sharing buttons which help share web content directly from web pages to the social media platform in question. Users are advised before using such social sharing buttons that they do so at their own discretion and note that the social media platform may track and save your request to share a web page respectively through your social media platform account.

Shortened Links in Social Media

This website and its owners through their social media platform accounts may share web links to relevant web pages. By default some social media platforms shorten lengthy urls [web addresses] (this is an example: https://bit.ly/zyVUBo).

Users are advised to take caution and good judgement before clicking any shortened urls published on social media platforms by this website and its owners. Despite the best efforts to ensure only genuine urls are published many social media platforms are prone to spam and hacking and therefore this website and its owners cannot be held liable for any damages or implications caused by visiting any shortened links.

Online Community

All our online communities including third party platforms .eg. Facebook, Twitter and this list in not limited to, are moderated and we do not display the full names of individuals nor addresses. The posting of personal information on a discussion board means your information is publicly accessible. Such information can be viewed online and collected by third parties. We are not responsible for the use of information by such third parties. We strongly recommend all registered users to keep their postings anonymous. We also recommend you avoid sharing any personal information that can be used to identify you (such as your name, age, address, name of employer). We are not responsible for the privacy of any identifiable information that you post in our online communities.

Our Liabilities

Information displayed on our site or contained in any communication we may make is provided without any guarantees, conditions or warranties as to its accuracy.

To the extent permitted by law, we and third parties connected to us expressly exclude:

All conditions, warranties and other terms which might otherwise be implied by law.

Liability for any direct, indirect or consequential loss or damage incurred or suffered in connection with our site or in connection with the use, inability to use, or results of the use of our site, any websites linked to it and any materials or information posted on it, or contained in any communication we may make, including, without limitation, any liability for, loss of income or revenue, loss of business or opportunities, loss of profits or contracts, loss of anticipated savings, loss of data, loss of goodwill, wasted management or office time; or for any other loss or damage of any kind, however arising and whether in tort (including negligence), contract or otherwise, even if foreseeable.

We do not seek to exclude liability for death or personal injury arising from our negligence, nor our liability for fraudulent misrepresentation or any other liability which cannot be excluded or limited at law.

English courts will have exclusive jurisdiction over any claim arising from, or related to, a visit to our site although we retain the right to bring proceedings against you for breach of these conditions in your country of residence or any other relevant country.

A dispute, claim or terms of use breach arising out of or in connection with them or their subject matter or formation (including non-contractual disputes or claims) shall be governed by and construed in accordance with the law of England and Wales.

Changes to our policies

We reserve the right to change our policies as and when is necessary, please check back occasionally to see our revisions. We do review our policies. Our online policies were last reviewed in May 2018.

Questions or concerns

If you have any questions or concerns regarding our website please contact us using this form

About Pumping Marvellous

A need for Pumping Marvellous was identified by heart failure patient Nick Hartshorne-Evans in February 2010 to quickly address support and care of a non clinical nature after initial diagnosis for heart failure patients in the UK.

1.The content in this website should not replace and/or substitute the interactions with and advice you get from your healthcare professional, and if you have any concerns about your condition you should discuss these with your healthcare professional at the earliest opportunity.