The experience of making positive change in my life

Main menu

Tag Archives: stroke

Today has been one of the most harrowing days of my life. I’m currently propped up on pillows on the couch staring, half-watched the tv. Mom’s falling asleep with Ellie in the chair, intermittently telling me random things. I’m trying to to type but it’s extremely difficult.

I went to the VA MH Council meeting this morning – no problems. I mean, I didn’t want to go and felt a bit out of sorts but no more than normal. I was running late but participated a lot and socialized with Jean & Howard and McCail after, walked down with everyone. I didn’t want to leave just yet, wasn’t sure about plans for the day, so I sat down in the lobby and journaled and charted. It’s something I’ve done before. I like having moments to myself, unrushed, and I like watching the volunteer interactions there at the front. I was starting to feel like my blood sugar was low, getting a bit weak and disoriented. I wrote it down. I was alarmed when I got up to leave and began stumbling to the right. My purse is heavy and I used it as a counterweight. I figured if I could just get some food I’d probably be just fine. I made it to the Valet, ate a glucose tab, made it to the Chipotle parking structure, thought things were fine. I worked on something on my phone before getting out of the car. But when I did I was still falling and stumbling to the right. I had a heck of a time trying to get up the broken escalator stairs. I was starting to freak out as I waited at Chipotle. It was hard to breathe but I wasn’t feeling anxious. I made it through the line leaning on the counter, could barely hold myself up. I held myself up on the table until I could sit down. A growing portion of the right side of my face felt pressure, then tingling, then burning. Lips sat in a pout. My right hand and arm were shaking so bad I couldn’t eat more than a few bites. It wasn’t like anything I’ve ever experienced and God in my head kept telling me, “GO.” I knew I wasn’t safe to drive. I drank half my soda, bagged the food, and called an Uber. Thankfully, there are many around me.

I was lucky to arrive at the hospital in an utter lull. I knew what would probably happen and did – Stroke Code. Front of the line, many nurses and doctors all around testing everything under the sun. I was having trouble speaking clearly, moving my right side purposefully, holding a steady gaze. I had no pain. I wasn’t anxious. I was actually quite peaceful. All I’d wanted to do that day was get my nails painted but that would have been after Chipotle. Lots of blood tests, urine tests, eventually an MRI.

They were much less interested when they figured out I’m a psych patient. Reminded me SO much of Adrienne and scared me, but I was exhausted – both from shaking so much and fear and from the Ativan they gave me to try to stop the shaking for the MRI. I couldn’t move if I’d tried in the MRI thanks to drugs but I couldn’t stop the twitching/shaking. It’s been like that sometimes in the past few weeks. I don’t know why. The MRI people were nice. The last doctor not so much. The nurse came in and said great that my mother was there and she could drive me home. Ummm, excuse me what? The doctor came in and said my MRI of my brain was perfect and there was nothing wrong. I looked up at him and said, “I’m gonna have to call ‘Bullshit’ on you for that one there but continue…” He gave no explanation of any of what happened or why, how to prevent it from happening again, what to do if it comes back. Nothing. He just left. Dickwad. It’s really hard to type this ‘cuz my fingers are unpredictably shaking and I’m mostly lying down ‘cuz I’m too weak to continue sitting.

I didn’t call my mom ‘til just before the MRI. I knew she was off work then and she’d want to know. I didn’t ask her to come or for anything. I specifically did not need people freaking out around me. Minus all the patient reports outside, that room was so peaceful. I prayed and watched and felt. I listened. I tried to write. It worked a little. There was no tv or music, just me. And that was okay. The Ativan toward the end made me really tired and I know it’s still making me tired now. I’m still getting waves of confusion and dizziness. I contacted Dr. M but I think he wasn’t there.

So what do I do now? I asked David and Soleil for cancellations tomorrow and David called me. After talking a little, I get to see Soleil tomorrow. He says if there’s nothing wrong with my brain then it’s all psych and I’m under a tremendous amount of stress. Don’t you throw that psychosomatic crap at me. When I’m stressed my pain gets worse. I don’t go ‘round fake believing I’m having a stroke. Too much work if nothing else. I told him I agree I’m under a shit ton of stress but ALSO that something neurologically is WRONG with me, STILL. Fluids don’t solve that. Neither does the Chinese food I ate after. Nor will a few hours’ sleep. Today, though, wasn’t stressful before this. I wanted to get my nails done!

I need help but God only knows what with. I’m SOOOO tired and sore. God save the queen. Here’s to a tomorrow sans weakness, shaking, falling over and pretty large needles. Here’s to a tomorrow that’s not so scary and more easy to understand. Please pray if you do. Thanks.