Friday, March 20, 2015

Thanks to Tracy stepping up and telling her story for RareDisease Day 2015, Trimethylaminuria was represented in this event. We thank you, Tracy, for your contribution to our cause.

“More than 160 people submitted photos & stories to the Handprints Across America™ gallery. By working with Rare Disease Day founder, EURORDIS, our efforts helped to make this a truly global event with hundreds of patient organizations & thousands of events on every continent. Several new countries, including Bolivia, Estonia and Madagascar, participated in Rare Disease Day for the first time.”

Rare Disease Day 2015 Highlight Video

Rare Disease Day 2015 was our biggest and most impactful yet!

The final 2015 State House Event took place yesterday. Now that all of the numbers are in, take a look at (and share!) this year's highlight reel & recap:

​Together, we planned and hosted32 State House Eventsin capitol buildings across the U.S., up from last year's 12 State House Events

By working with Rare Disease Day founder, EURORDIS, our efforts helped to make this a truly global event with hundreds of patient organizations &thousands of events on every continent. Several new countries, including Bolivia, Estonia and Madagascar, participated in Rare Disease Day for the first time

With all of our efforts, Rare Disease Day continues to grow! Thank you to everyone who planned and attended events, joined the social media campaign, changed their profile photos, shared infographics, and got involved.

As the official U.S. sponsor of Rare Disease Day, NORD thanks everyone who came together to support this truly community and group effort. Together, we are strong!

Keep the Momentum Going

You can help keep the positive Rare Disease Day momentum going by urging your representatives to support the Ensuring Access to Clinical Trials Act. This bipartisan legislation would help more people with rare diseases participate in clinical trials without fear of losing important benefits or health coverage. Learn more & take action as easily as entering your zip code.

Looking Ahead: Rare Disease Day 2016

Planning is already underway! So far, 27 states have committed to hosting State House Events. Join us and get involved - send us an email and visit thewebsite in the coming months.

Rare Disease Day 2016 will take place on Feb. 29, 2016, the rarest of all calendar days.

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