Tag: M.E

THIS SHOW NEEDS TO START TAKING NOTICE OF WHAT IS GOING ON WITH PARENTS OF UNSEEN DISABILITIES

C’mon….It is about time that they responded to one of my emails and actually decided to break the silence and help families realise that they are not alone with the horrible and INCORRECT allegations of child abuse that arise from the healthcare servcies who do not see the invisible conditions. YES that person who spoke about fatigue and ME was right (post edit: Jane Colby of Tymes Trust), if something that the health professional suggests doesn’t work, (in this case it was discussing CBT with Chronic fatigue) they automatically assume that the parent has another agenda, a disgraceful and lazy accusation of Munchausen’s by Proxy. It is tearing families apart and it is not only with Fatigue as per the feature on the show just. IT IS WITH AUTISM. AND IT HAS HAPPENED TO ME, MY PARTNER AND OUR CHILDREN! No harm was found, after a hell of a time. Yet, it was gutwrenching and unfair.. and no one has apologised for being WRONG.

Please can someone pick up this story??? Much more needs to be done urgently to lift this overwhelming shadow that the NHS and Children’s Services place on innocent and incredibly caring parents.

Hey there & welcome

I’m Bernadette Louise.
Mother. Artist, Writer, Fighter.

I have a fiery tongue and write an honest sometimes brutal account of parenting, partnering and being on the Autism Spectrum with Pathological Demand Avoidance. Using Creativity as a therapy tool and to tackle injustice. A Hidden Disability is exactly that, good maskers still struggle. Neurodevelopment conditions and Mental Health conditions are not less damaging, because you cannot see them, they are more so. If you look close enough, the signs are there anyway.