I have just recently found out that I have stage 4 endometriosis. All I know is my bowel is completely connected to my womb. Last week my gynecologist put me on prostrap injection, But today I started bleeding is this normal. I rung my gynecologist and they said it was normal, they said I was just starting to go through menopause. I'm hating it already, I thought we wasn't supposed to bleed whilst on this injection.

Thank you Jane, but it's also given me water retention in my legs, and 2 days after injection I come out in a rash on my face. I really don't like this injection. If you don't mind me asking how did they did rid of your endometriosis. I've been told it might be hysterectomy and bowel removal. I'm proper bricking it. Xx

I've had two laparoscopic surgeries and I now have Mirena. But I'm still in quite a bad way, bleeding every day and uncomfortable. The injections worked really well for me while I was on them. I'm sorry to hear they are causing you problems x

I got told that you could blead depending on when you had your last period and then the injection . Also when I went for my 2nd injections Tuesday the nurse said it can take until the 3rd injection for ladies to have any relief.

I feel lucky as after 12 days I have had very minimal pain and only a few heated moments (wouldnt say I've been sweating)

I think this is a great trial to see if a full hysterectomy is right for me after years of pain, upset and operations... hopefully this is the answer

Thank you for your help. But my gynecologist has told me it could be a full hysterectomy and bowel removal. As the endometriosis has got hold of my bowel and it's pulling my bowel up. Thank you for your info, I appreciate it. X

I had the same thing. I had partial removal of my lower bowel as it was attached to my ovary and womb and even going into the intestinal wall. Have an intestinal surgeon on hand for the op. My intestines now spasm leaving me with painful diarrhea 3 or 4 times a week on top of the other endless pain.

It is quite unbelievable how general gynaecology departments are treating women. The NHS requires that you are treated at a BSGE endo centre for stage 3/4/rectovaginal endo and you are being treated totally inappropriately. I have some files on here if you would like to look but I now have a closed FB goup where we can discuss centres/surgeons if you would like to join:

I haven't had the choice. I got told there's only one specialist and he's based in hull royal infirmary. But I'm dreading if/when the appointment comes through. I've got stage 4 the whole of my bowel is connected. My gynecologist said it might be full hysterectomy and bowel removal.

It is of no relevance what they have told you. You can choose to go anywhere in the UK under NHS choices and they can't stop you. Hysterectomy is not a treatment for endo - the treatment is excision. Hysterectomy is reserved as a last resort if all else fails. I have joined you on the group so let's follw through on theri