tag:blogger.com,1999:blog-76045027708439144862016-01-23T08:40:31.135-08:00THESE GENESWe all live in different genes... some of us, in THESE GENESSPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.comBlogger34125tag:blogger.com,1999:blog-7604502770843914486.post-72263362489934385242011-07-01T06:22:00.000-07:002011-07-01T06:23:03.308-07:00World Sickle Cell Awareness“World Sickle Cell Awareness”
Whenever I hear that, I usually just think of annoyingly large groups of people, walking long distances with less than average musical bands playing horrible renditions of what should be good music, wearing ugly red tee-shirts with some slogan or the other about living with sickle cell, and some noisy unpleasant old woman being a very serious nuisance with the help The Capoeira Pandahttp://www.blogger.com/profile/04417388679141426914noreply@blogger.com5tag:blogger.com,1999:blog-7604502770843914486.post-42810154314196756852010-06-15T00:20:00.000-07:002010-06-15T00:21:35.433-07:00A message from one of our partnered charities about WORLD SICKLE CELL DAYin celebration of the World Sickle Day,Sickle Cell Advocacy & Management InitiativePlease Join Us for anAwareness WalkWalk for Change: Be Sickle SmartTake off Point: National Stadium End Point: NIMR Hall, Edmund Close, YabaTake off time: 8.00amFOR YOUR BRANDED TSHIRTS and/or CAPS TEXT 0809 800 7264 WITH YOUR NAME NOS & SIZE. Cost: T Shirts 3000, Cap 200 ( this is limited in qty)and aSymposiumIn SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-23153151406209319552010-05-25T03:06:00.001-07:002010-05-25T03:06:19.914-07:00SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com1tag:blogger.com,1999:blog-7604502770843914486.post-22090108667077463892010-05-24T15:45:00.000-07:002010-05-24T17:08:54.074-07:00JEANS FOR GENES 2... still more picturesMoyo of IMAGINE CLOTHING with some of the models wearing her designs for the show!Toni Payne, Designer, with cross section of models with her designs for the showToyin, Charles, Zara, Toni, Buki Emem and Kunle BelloEva gets shown some love!mODE nINE, one of the performers speaking about THESE GENESAda, Zaeynab, Ebere and Abiola! All Rocking THESE GENES and these smiles!All FOR THESE GENESUnRuliesSPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-17531485945781517882010-04-20T00:35:00.000-07:002010-04-20T02:02:08.278-07:00Jeans for Genes in more PicturesModel working the runway in a Polo by OUCH!(not seen in this picture, but she is wearing sandals by T.T. Dalk Accessories)Mo Cheddah lenu at Jeans for Genes! Guess she still can't be censored!Gbemi Olateru-Olagbegi, Tosin Oni, Maynezee, and more faces at the eventModels at the eventzaraPOPE na enjoyment!Media presence at the eventmODEL models Toni PaynetUNde Aladese models a Happy Facez teeshirt SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com3tag:blogger.com,1999:blog-7604502770843914486.post-7276053099959090972010-04-19T22:38:00.000-07:002010-04-20T02:01:54.693-07:00Jeans for Genes in Pictures!Kunle Snatcha Rooftop (what a mouthful) registers for Jeans for Genes! Zara the Flyest!Tosyn Bucknor( These Genes), Kunle Bello and Emem Ema (the M.Cs)More Accessories, including BUCKSTONE Flip-Flops on display!Accessories by My Dazzle on display Toyin Adesola of S.A.M.I.Kunle (Snatcha of the Rooftop MCs, Ohimai and Mode Nine at the event)They call him Willy Bang! EVASKALES SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com1tag:blogger.com,1999:blog-7604502770843914486.post-60528386986998931022010-04-06T02:39:00.000-07:002010-04-06T02:46:31.711-07:00Jeans for Genes, the Morning After!well... maybe several morning afters!Sorry for the radio silence, but dont worry, we are not planning to pack this blog up and pretend sickle cell never happenEven though this blog was utilised effectively for the dissemination of information about Jeans for Genes, it was primarily set up to give constant information about sickle cell in general, and one persons journey with sickle cell in SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-9558536410488620822010-03-23T01:23:00.000-07:002010-03-23T01:24:54.349-07:00Rocking THESE GENES of mine... a personal storyWhen i am asked to write about my journey as a person living with sickle-cell, the challenge for me is finding the right balance. I do want to share my experiences and let you know how it felt, and feels, but i also do not want to come across as self-pitying or whining. Then there is the delicate balance between hope and reality. Yes, you can live with these genes, but it is a painful journey no SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com12tag:blogger.com,1999:blog-7604502770843914486.post-50180008218573041752010-03-18T08:46:00.000-07:002010-03-18T09:00:34.018-07:00Ten Things to Know about JEANS FOR GENES!Hi guys! Here are ten things to note about JEANS FOR GENES, the upcoming fashion party market!- Jeans for Genes is a fashion show/party and market! IT is scheduled to hold on Sat March 27th, at the swanky SWE BAR, City Mall, Onikan, 3pm. Jeans for Genes is brought to you by THESE GENES, a sickle cell project run by Tosyn Bucknor. These Genes aims to create awareness-based social programmes, for SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-6399027535056065182010-03-12T01:54:00.001-08:002010-03-17T04:53:13.012-07:00Wait A Minute; What is Sickle Cell Disorder? What is sickle cell disease?Sickle cell disorder (SCD) is a family of inherited disorders,of which the most severe and common is sickle cell anaemia(HbSS). SCD affects how red blood cells carry oxygen aroundthe body, is a lifelong condition that affects both males andfemales, and is the most common genetic disorder in England.Sickle cell disease can cause fluctuating symptoms rangingfrom pain RHYMESVILLEnoreply@blogger.com2tag:blogger.com,1999:blog-7604502770843914486.post-73739835617430038152010-03-11T05:24:00.000-08:002010-03-11T05:49:39.949-08:00The TEES are here! YAY!Great news!The tee shirts are here!We would like to thank IMAGINE CLOTHING for working on these tees tirelessly and delivering them on time and on pointWe love you!So!Remember that these tees serve two purposes- raise funds for SAMI, our partnered sickle-cell charity- act as the invite for the event, JEANS FOR GENES!Jeans for Genes is of course, our fashion show which holds in a few days time. SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-22172548095870520422010-03-03T04:11:00.000-08:002010-03-03T22:34:15.506-08:00So what will you be doing on Sat Mar 27th?So guys, here is an update!But first, let's say, its March already?ALREADY?This means there are only a few days left to go!Yes o!The biggest fashion show/party/market is going down on Sat Mar 27th at the swanky SWE BAR, in Onikan!Our designers are ready:TONI PAYNE, STRICTLY NAIJA CLOTHING, OUCH! HAPPYFACEZ and IMAGINE CLOTHING!See what their designs are like, and buy these tees ON THE SPOT!Some SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com4tag:blogger.com,1999:blog-7604502770843914486.post-61549472031637983532010-02-24T04:22:00.000-08:002010-02-24T04:28:32.564-08:00Jeans for Genes 2! LETS GO!On Mar 27th, These Genes will throw the JEANS FOR GENES Music... Fashion...Sickle Cell party!Featuring designers likeToni PayneStrictly NaijaOUCH!HappyFacezImagine Clothingwith music byDippSkukiLamiS.K.A.L.E.SHakym the DreamZaraOverdoseWilly BangLoose KaynonMo CheddahThere will be teeshirts, accessories and more on sale, plus a runway and photo shoots!Jeans for Genes creates awareness about SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-49405507766699933702010-02-22T00:27:00.000-08:002010-02-22T03:38:47.485-08:00Fill in the blank space...and add 'Genes, Jeans and/or Tee shirt' where appropriateSo it's a few weeks to the next 'These Genes' gig and I'm already excited. Overtly so if I may add. Yeah, I'm also asking myself inwardly if everything is alright with me. Guess I'll blame it on my experience at the first gig. They go as follows1. It remains one of my best networking experience. Even the usually stuck up Lagosians acted 14u2bnoreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-73084604197780640782010-02-17T07:04:00.000-08:002010-02-17T07:09:25.838-08:00JEANS FOR GENES needs YOU!!!JEANS FOR GENES 2... where fashion meets music!It is a teeshirt and jeans party this time around, and how creative can YOU get?Inspiration comes from Toni Payne, OUCH and 5ve, with music by Lami, Loose Kaynon, Skuki, S.K.A.L.E.S and Hakym the DreamMore houses to come, more artistes to performthere will be teeshirts on sale before and on the day, and we are trying to raise money for someones SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com1tag:blogger.com,1999:blog-7604502770843914486.post-19332735321518738972010-02-16T00:55:00.000-08:002010-02-16T01:28:37.759-08:00Jeans for Genes... the story in pictures continuesSPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-74558424828452191102010-02-16T00:08:00.000-08:002010-02-16T00:44:02.323-08:00jeans for genes 1 in picturesSPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-5640244271580573172010-02-15T23:53:00.000-08:002010-02-16T00:07:55.488-08:00Jeans for Genes; the first time roundSPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-15519789299234459342010-02-11T06:30:00.000-08:002010-02-11T06:31:18.262-08:00Jeans for Genes...Second Time Around!Jeans for Genes, one of the events organised by THESE GENES sickle-cell project, was a huge success first time round! With Fashion houses like Beampeh, Byge and My Q exhibiting, and artistes like Etcetera, M.I, Sage, MP and Bez performing, Jeans for Genes provided entertainment, awareness, and a platform!This year, JEANS FOR GENES is back! And this time, as a teeshirt party!Just remember, SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com2tag:blogger.com,1999:blog-7604502770843914486.post-21681604603268886132010-01-04T06:03:00.000-08:002010-01-04T06:04:39.547-08:00WE THINK YOU SHOULD KNOWHi guys!Welcome to the New Year... that is, if you haven’t got tired of it already!LOL!So 2010 promises to be fun, and we thought we should run some things by you!THESE GENES sickle-cell project which has been doing work in the background quietly in 2009, will be making noise in 2010! Please click on the link below to join the group on facebook for regular updates!First event March, noise starts SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-52879011783515944962009-12-24T22:19:00.000-08:002009-12-24T22:28:12.215-08:00Have yourself, a VERy, merry christmas!!!SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-15476663319329902302009-08-23T02:38:00.000-07:002009-08-23T02:47:01.509-07:00RandomA member of the THESE GENES team has been ill for a bit. It really was sad but we believe that he will get out of it and be healed completely in Jesus name.When people living with sickle cell fall ill or die, people seem reluctant to tell me, or when they do tell me, they look at me to see my reactionMy reaction hardly varied though.It is very sad to hear that someone is ill, or that someone has SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-52850749298857384312009-08-15T04:40:00.000-07:002009-08-15T04:41:55.628-07:00I had a party EVERY birthday when i was growing up. Now i understand why!SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com0tag:blogger.com,1999:blog-7604502770843914486.post-19774588032225702122009-08-01T04:12:00.000-07:002009-08-01T04:15:58.878-07:00Falling in love with a sicklerSo what happens if you fall in love with someone living with sickle cellThats what i got asked yesterday!Maybe someone shd ask my exes cos they never seemed to mindIll say this tho...Be prepared and realisticLove does conquer a lot as families of people living with sickle cell can attest, and love helps us thrive better. Knowing we are wanted1. Dont be afraid to speak about it and learn what SPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com1tag:blogger.com,1999:blog-7604502770843914486.post-48499523308720907192009-07-29T10:13:00.000-07:002009-07-29T10:42:03.031-07:00Check out the interview on www.bellanaija.comI wont lie, sometimes i read interviews where i speak about living with sickle cell and i cringeAm i the only one?Then i realiseIts also part of the work i do... GOD please help meSPEECHgirlhttp://www.blogger.com/profile/00688236912526630289noreply@blogger.com1