Yesterday was just one of those days. :-( Henry and Cecily had a 10:45 appointment to get new ID cards, which they both need for medical care. So this was a very important appointment. Meanwhile, Danny had an appointment across town at the c... Read more

I usually try not to be a Debbie Downer, but this blog will be an exception. I am hurting badly for two of the strongest, bravest parents I know, and their beautiful daughter.
One of the greatest supports I have found since Danny's cancer ... Read more

Nothing too exciting has been happening with life lately, and that's a good thing overall. Last week Danny was in Florida with his father, stepmother, and stepbrother. They visited the Disney parks and also Universal Studios. Danny never like... Read more

Danny had an appointment scheduled in Houston at M.D. Anderson
this past Monday, the sixth. Dr. Mahajan, his radiation oncologist in
2013, likes to follow up yearly with the kids she has treated. She also
wants them to have neuropsych t... Read more

The pictures from our summer camp appear to be too big to post on this blog. Oh well, I should have some others later that I may be able to post.
Getting back to Danny and his treatment, we returned home from having been at camp Sunday nig... Read more

So much time has passed since I did a real Danny update that I am going to try to do a brief recap of just the main points. Given my propensity for long-windedness, I may not be successful in the 'brief' category, but I'll try.
The previou... Read more

Once again I am skipping quite a bit of Danny medical stuff in order to blog about the appointment he had today, which was pretty intense, for me as well as him.
He had been complaining of double vision quite a lot recently. As it turns ... Read more

I haven't posted a Danny update in a very long time, mostly because I always seem to be too tired in the evenings when I tend to have more time. I will try to do an overall update of the past few weeks, but for the moment, I will start up afres... Read more

Well, I posted back in May (a month ago!), that I had been suffering with an injured and painful ankle. I saw the doctor, who ordered an x-ray and recommended pain meds, rest, etc.
Well, pain meds didn't help much, and rest was pretty mu... Read more

Today was one of those days when you pretty much come home, throw yourself in bed, and collapse, totally exhausted. It was a chemo day, slightly complicated by the fact that Henry was still in town for the long weekend, and he wanted to come to... Read more

Today Danny had a regular clinic visit for blood counts. I wasn't expecting anything too bad, since his counts had been fine on Sunday. In particular, his neutrophils (infection-fighting white blood cells) were relatively high.
Well, I wa... Read more

That would be Alexander, he of the terrible, horrible, no good, very bad day. I actually thought we had had terrible, horrible, etc., days before, but I was wrong. They paled in comparison to the past three days. One day isn't enough to encom... Read more

I don't think I mentioned in earlier blogs that I had an appointment with my own doctor (how bizarre to go to any doctor other than my kids') last week. I really like this guy. He does a whole lot of blood work and then sees areas that might b... Read more

I was quite nervous about Danny's MRI results. Dr. Whiteway had put the request for a scan in the system, but when I went in to schedule it a week ago, the first available opening was June 21st. I knew Dr. W wouldn't think that was soon enough... Read more