“Certainly you hope with therapy and surgical interventions, that the Tassi family is working towards, you hope things get better,” Noble said.

Sarah says she's been told Preston can't have the surgery until he turns five and it's an expensive procedure.

“We’re assuming about $100,000,” she said. “That's kind of our goal right now.”

It's money the Tassis don't have. They've moved in with her parents to begin saving.

But Jason says he and Sarah were committed the moment they met their bubbly little guy.

“It's unexplainable,” he said. “My mom always told me you'll never understand how much you can love a child. And I kind always thought she was blowing smoke.”

Noble said doctors don't yet know why kids are born with Moebius Syndrome. Or why the cranial nerves are damaged or missing. Or exactly what challenges each child will face.

“I would anticipate in the future as medicine catches up with Preston he will have a lot to teach us,” Noble said. “But at this point there's a lot of conditions where we just we just know that we don't know.”

In the meantime, Sarah and Jason say they aren't afraid of hard work. And when Preston giggles, they say they will look in their little boy's eyes.

“You can tell in his eyes when he's smiling,” Sarah said.

“We just feel blessed to have him in our lives,” Jason said. “Every second of it.”

Sarah and Jason have begun the saving and fundraising process.

They’re having a Blue Grass Festival Benefit for Preston on Sunday, June 9. It’s a the Saylorville Lake Sandpiper Shelter from noon until 9 p.m. There will be food, music and a silent auction. The Jaycees are coordinating a bags tournament.

Hy-Vee and Fareway have donated the food.

If you’d like to help the Tassi family save for Preston’s surgery, there is an account set up in his name at Veridian Credit Union.