Monday, August 15, 2011

Soooo behind on life

I feel like there are a gajillion things I could tell you about right now.Summer schedule(vacations,rehab,sickness) has me way behind on my bloggy. So I'll start here,

Davy's new favorite toy. Oh and did I mention Davy has finally started to acknowledge toys!!? She will actually roll a ball to me! But right now she is in love with Davy Jr.

Davy Jr was handmade by my very(this is not an exaggeration)talented cousin, Emily. She made

two of these lovely dolls for the team Davy Benefit, one for Davy and one to auction. It was way too kind of her and I can say I love Davy Jr probably more then Davy does. I had a hard time letting Davy even play with her cuz let's face it, Davy has a bit of a throw up problem. But seeing Davy squeal with happiness and strangle her doll with love is totally worth the doll getting slimed.

I have heard a rumor that Emily may be opening an Etsy shop. Not 100% on this but you can go to her blog http://sloppycrafts.blogspot.com and beg her to make a dolly for your little girl

(or just for you). Plus you have to see the other dolls she has made.....so cute.

love the little twinners! that is so sweet of your cousin. i just got penny a doll super similar to this one at a farmer's market. i'm saving it for her bday next month, i'm hoping she'll love on it as much as davy does! such cute pic ruth.

Davy's medical History

I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.

Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.