Carolina Here We Come!!!!

Tomorrow is the big day! We will be discharged and should arrive home sometime on Friday. Gabrielle has made amazing progress over the last two weeks. She is walking while holding my one hand and can take steps between people or stable objects. She is able to move fairly well on her hands and knees now and she can independently get herself to a sitting position most of the time. The recovery of her left arm has been slower and she really does not move her left hand at all yet. The symmetry of Gabby’s face has improved and she is compensating well for the visual field cut which resulted from surgery. A CT scan of the head was completed and it showed no evidence of hyrdocephalus. Horray! The doctors say that normally if there is going to be a problem with CSF drainage it would have occurred by now so this is great news.

Overall, Gabrielle is a completely different child than she was 6 weeks ago. I think back to when we arrived in rehab and she couldn’t even maintain a sitting position or hold her head up straight and now she is cruising down the hallways like a little spit-fire trying to keep up with her fellow rehab buddies. I feel so much better about going home. Gabby still has a lot of work ahead of her and she begins outpatient PT first thing Monday morning. They are recommending she receive about 10 hours of therapy per week at this point which will make for a busy schedule. I am excited though to see the milestones Gabrielle can achieve with those nasty seizures behind her.

I want to thank all of our family and friends who have carried us through these last few months. We wouldn’t have been able to come to NY to get the very best care for our daughter without the help of so many of you. You have so unselfishly given to get us to this point. We pray that God will provide us with many opportunities to give as generously as all of you have given. We thank God for His mighty hand in all of this and for the amazing people He has placed in our life.

Hey Kelly!
I hope that this means that you have made it home safely and are doing well! Gabby looks absolutely WONDERFUL in the pictures and video! I have the same blue therapeutic bench sitting here as well as a rear support walker with hip supports waiting here for your word if you can use them at all! I would love to hear from you! Give me a call sometime at 607-3318! My prayers continue for you and your family. I am sure that you are enjoying meeting your daughter again as personality certainly changes when nasty seizures are no longer there! If you need anything I am here and willing to help where I can!