I don't have lymphedema, but am a survivor, and attended a class on lymphedema. The nurse said, if it is treated early, it can be controlled, so it is good you are seeing a specialist.

My brother was concerned about this as well, as he is 7yrs out from a melanoma dx and had many lymph nodes removed. He wrapped his arm every day for the 1st 2yrs after diagnosis, but now rarely worries about it. He only wraps his arm now, when he flys, as the changes in air pressure can cause a flare-up in those prone to lymphedema.