Privacy Policy

We know that the security of your personal data (information about you as an individual) is an important concern when you use this website, and we take the protection of personal data very seriously. As a result we would like you to understand how we collect, process and use personal data. We recommend that you read this Privacy Policy so that you understand our approach towards the use of your personal data.

By submitting your personal data to us, you will be treated as having given your permission – where necessary and appropriate – for disclosures referred to in this Privacy Policy.

Who is responsible for the personal information collected on this site?

For general requests, your personal data is controlled ultimately by by Lygature, a not-for-profit organization registered in Leiden, The Netherlands with registered number 28111472 whose registered office is at Galileiweg 8, 2333 BD Leiden, The Netherlands.

Special Notice - if you are under 18 years old Our website is not aimed at children under 18 years old and we will not collect, use, provide or process in any other form any personal data of children under the age of 18 deliberately. We therefore also ask you, if you are under 18 years old, please do not send us your personal data (for example, your name, address and email address). If you are under 18 years old and you nevertheless wish to ask a question or use this website in anyway which requires you to submit your personal data, please get your parent or guardian to do so on your behalf.

Purposes of the collection of your data

One of the purposes of our website is to inform you of who we are and what we do. We collect and use personal data (including name, address, telephone number and email) to better provide you with required services or information. We therefore use your personal data in order to:

respond to queries or requests submitted by you

process orders or applications submitted by you

administer or otherwise carry out our obligations in relation to any agreement you have with us

anticipate and resolve problems with any goods or services supplied to you

provide services covered under separate agreements available on this website that may meet your needs.

To optimize our information we may wish to use your personal data for direct emails. As we respect your privacy we will only use your personal data for this purpose when you are aware thereof and if required we will request your consent prior to using your personal data.

Additionally, if at any time you wish us to stop using your personal data for any or all of the above purposes, please contact us as set out below. We will stop the use of your personal data for such purposes as soon as it is reasonably possible to do so.

In addition, the collected personal data may be transferred to selected third parties, which may be located outside of the Economic European Area (“EEA”) as part of the services offered to you through our site. By way of example, this may happen if any of our servers are from time to time located in a country outside of the EEA or one of our service providers is located in a country outside of the EEA.

These third parties will be obligated not to use your personal data for any other purposes than what we have agreed with you. We request those third parties to implement adequate levels of protection in order to safeguard your personal data.

We respect your personal data and therefore, we will take steps to ensure that your privacy rights continue to be protected if we transfer your personal data outside of the EEA in this way. In addition, if you use our services while you are outside the EEA, your personal data may be transferred outside the EEA in order to provide you with those services.

Except as set out in this Privacy Policy, we will not disclose any personally identifiable data without your permission unless we are legally entitled or required to do so (for example, if required to do so by legal process or for the purposes of prevention of fraud or other crime) or if we believe that such action is necessary to protect and/or defend our rights, property or personal safety and those of our users/customers or other individuals.

Please be assured that we will not use your personal data for a purpose or in a way you have indicated that you do not wish us to use when the data are submitted or when updated at a later date.

Collection of non-personal data

We may automatically collect non-personal data such as the type of internet browsers used while visiting our website or sites from which visits originated (via a link). We may also aggregate details submitted to the site (for example, visitors’ ages and the towns where they live). You cannot be identified from this information and it is only used to assist us in providing an effective service. We may from time to time supply third parties with this non-personal or aggregated data for uses in connection with this website.

Purpose of Use

The personal data we collect will only be used for the purpose of supplying you with requested products or services, or for other purposes for which you have given your consent, except where otherwise provided by law.

Interaction between you and us

The Pediatric Praziquantel Consortium prioritizes open innovation, and communication between all interested parties, and we will therefore set up a range of Forum facilities (including notice boards, newsgroups, feedback, email, forums and chat rooms). We may collect personal data that you disclose while using such facilities. Such data will be used in accordance with this Privacy Policy. However, we can of course not control and be responsible for other parties' use of the personal data which you make available to them through this website via a Forum. We encourage you to be careful about what personal data you disclose in this way.

Keeping our records accurate

We aim to keep your personal data as accurate as possible. If you would like to review, change or delete the details you have supplied us with, please contact us as set out below.

Security of your personal data

We have implemented technology and policies with the objective of protecting your personal data from unauthorized access and improper use and will update these measures as new technology becomes available, as appropriate.

Data retention

We only retain personal data for as long as is necessary for us to render a service you have requested or to which you have given your consent, except where otherwise provided by law (e.g. in connection with pending litigation).

Use of your personal data submitted to other websites

On our website, we may have links to other websites, or you may be referred to our website through a link from another website. Please note that we cannot be responsible for the privacy policies and practices of other websites. Such content is subject to their terms of use and any additional guidelines and privacy information provided in relation to that use on their website.

Cookies policy

Cookies are small data files that your browser places on your computer or device, designed to help your browser navigate a website. Cookies themselves cannot collect any data stored on your computer or your files. To protect your privacy, your browser only gives a website access to the cookies it has already sent to you. We use cookies to learn more about the way you interact with our website content and help us to improve your experience when visiting our website. For details of how cookies are used, see our Cookies policy.

Changes to our Privacy Policy

From time to time we may make changes to this Privacy Policy. If we make any substantial changes to this Privacy Policy and the way in which we use your personal data we will post these changes on this page and will do our best to notify you of any significant changes. Please check our Privacy Policy on a regular basis.

How you can contact us

If you would like to contact us about this Privacy Policy, please use this form to contact the Pediatric Praziquantel Consortium Communications Team.