Occupational Therapyhttp://hdl.handle.net/10222/154522015-03-31T20:52:23Z2015-03-31T20:52:23ZThe everyday experience of living with and managing a neurological condition (the LINC study): study designVersnel, J.Packer, T.Weeks, L. E.Brown, J.Godwin, M.Hutchinson, S.Kephart, G.MacKenzie, D.Roger, K.Stadnyk, R.Villeneuve, M.Warner, G.http://hdl.handle.net/10222/504442014-05-05T14:36:11Z2013-03-01T00:00:00ZThe everyday experience of living with and managing a neurological condition (the LINC study): study design
Versnel, J.; Packer, T.; Weeks, L. E.; Brown, J.; Godwin, M.; Hutchinson, S.; Kephart, G.; MacKenzie, D.; Roger, K.; Stadnyk, R.; Villeneuve, M.; Warner, G.
BACKGROUND: The impact of neurological conditions on individuals, families and society is increasing and having a significant economic impact in Canada. While some economic data is known, the human costs of living with a neurological condition are poorly understood and rarely factored into future burden analyses. The "Living with the Impact of a Neurological Condition (LINC)" study aims to fill this gap. It seeks to understand, for children and adults with neurological conditions, the supports and resources that make everyday life possible and meaningful. METHODS/DESIGN: The LINC study is a nested study using mixed methods. We are interested in the following outcomes specifically: health status; resource utilization; self-management strategies; and participation. Three studies captured data from multiple sources, in multiple ways and from multiple perspectives. Study One: a population-based survey of adults (n=1500), aged 17 and over and parents (n=200) of children aged 5 to 16 with a neurological condition. Study Two: a prospective cohort study of 140 adults and parents carried out using monthly telephone calls for 10 months; and Study Three: a multiple perspective case study (MPCS) of 12 adults and 6 parents of children with a neurological condition. For those individuals who participate in the MPCS, we will have data from all three studies giving us rich, in depth insights into their daily lives and how they cope with barriers to living in meaningful ways. DISCUSSION: The LINC study will collect, for the first time in Canada, data that reflects the impact of living with a neurological condition from the perspectives of the individuals themselves. A variety of tools will be used in a combination, which is unique and innovative. This study will highlight the commonalities of burden that Canadians living with neurological conditions experience as well as their strategies for managing everyday life.
2013-03-01T00:00:00ZTalking about life after early psychosis: the impact on occupational performanceBrown, J. A.http://hdl.handle.net/10222/504432014-05-05T14:36:11Z2011-06-01T00:00:00ZTalking about life after early psychosis: the impact on occupational performance
Brown, J. A.
BACKGROUND: In early psychosis, the phase of illness and developmental stage pose unique challenges to recovery and provision of services. Insight into subjective experience is needed to achieve optimal outcomes. PURPOSE: To understand the complex ways that early psychosis affects occupational performance. METHODS: Phenomenology and occupational life history were used to explore lived experience of occupational performance with five participants. Three interviews with each person focused on life before, during, and following illness onset. FINDINGS: Qualitative analysis identified eight themes describing how psychosis is experienced as a lifelong phenomenon, how changes in occupational performance occur as life unfolds around the acute episode, and how participants move ahead with their lives. IMPLICATIONS: Integration of developmental frameworks, focus on productive roles, and thoughtful application of client-centred practice emerge as issues with important practice implications as individuals develop awareness of disability and strive to maintain control over occupational choices and, ultimately, their lives.
2011-06-01T00:00:00ZCatherine White CVWhite, Catherinehttp://hdl.handle.net/10222/503852014-04-26T04:15:32Z2014-04-25T00:00:00ZCatherine White CV
White, Catherine
2014-04-25T00:00:00ZGrace Warner CVWarner, Gracehttp://hdl.handle.net/10222/503842014-04-26T04:15:32Z2014-04-25T00:00:00ZGrace Warner CV
Warner, Grace
2014-04-25T00:00:00Z