Welcome

My name is Benjamin Maly and I was born on 11th October 2013 with a heart condition called Tetralogy of Fallot. After numerous blue spells and visits to Bolton hospital, I was referred to Alder Hey Children’s Hospital to fix my heart.

On 10th December, I underwent 5 hours of open heart surgery to correct my heart condition. My surgery went well but on 11th December, I went into cardiac arrest. I had to have two further emergency open heart surgeries and was put on the ECMO machine, which provides both cardiac and respiratory support to patients whose heart and lungs are severely compromised. I spent 2 days on the ECMO machine and over 14 days in intensive care following further complications.

My first Christmas and New Year was spent in Alder Hey hospital and I was finally discharged on Tuesday 7th January 2014. After that I still had another VSD (hole in the heart) and had more open heart surgery to repair that one.

I went through so much in such a short space of time and my parents and I feel very humble and sograteful to all the surgeons, consultants, doctors and nurses that ultimately saved my life.

WIth that in mind, and with the help of my Mummy and Daddy (a former Professional Golfer), we organised a Charity Golf Day in 2014 for the ‘Cardiac Surgical Fund’ at Alder Hey Hospital.

It was a fantastic day, everyone had a great time and I was able to raise lots of money to help the surgeons and doctors at Alder Hey Hospital save children’s lives the way they saved mine.