About

We are ambassadors, peers, and educators.

What is Spina Bifida?

Spina Bifida is a condition that affects the spine and is usually apparent at birth. It is a type of neural tube defect (NTD). According to the Centers for Disease Control and Prevention, 1,500 babies are born each year with Spina Bifida in the United States. Spina Bifida can happen anywhere along the spine if the neural tube does not close all the way. When the neural tube doesn’t close all the way, the backbone that protects the spinal cord doesn’t form and close as it should. This often results in damage to the spinal cord and nerves. Spina Bifida might cause physical and intellectual disabilities that range from mild to severe. The severity depends on:

Join Spina Bifida Wisconsin, Ltd.

Spina Bifida Wisconsin, Ltd is a state-wide organization and maintains a data base of Wisconsin residents affected by Spina Bifida. By joining you will receive occasional emails about our events and services. SBWIS does not sell or share your email.

EXECUTIVE DIRECTOR:

Directors:

ADMINISTRATIVE ASSISTANT:

Tonya Villwock, BSW

NON-PROFIT FORMS SUBJECT TO PUBLIC INSPECTION:

Upon written request, within 30 days, Spina Bifida Wisconsin, Ltd will provide our letter of exemption and 3 most recent 990 forms.

Spina Bifida Wisconsin, Ltd enhances the lives of Wisconsin's families affected by Spina Bifida by providing resources, peer support and social events in our community. We strive to raise other's awareness about the unique needs of people with Spina Bifida. We are ambassadors, peers and educators changing the lives of those we serve.