After having four CM brain surgeries (my last on 3/9/10) I had 'sworn off' any further invasive procedures, but living w/ CPS and the agonizing, devastation it brings, I am strongly interested in participating. We'll see...

I'm sorry you are not getting any relief yet, but great news that they are at least starting to look at a possible treatment. Hoping they find answers and pain relief at last!!!

Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com

I've put more thought into this and have changed my mind. In my heart of hearts, I don't have the stamina to go through another brain surgery and recovery. And the unknown outcome for myself is too big of risk. I will continue to hope for new meds and/or non-invasive treatments.