It’s all about ME!

I never expected to have trouble conceiving. For me it always felt like a given; find man, buy house in country with big garden, get married, have child, have more childs and possibly dog. We diligently worked through this checklist, ticking things off until, eventually, we knew the date we were going to start trying, had read our “How to conceive” book and I’d even removed my tummy button ring, in anticipation of an ever-swelling belly. Hell, we were serious about this, we were going to do it; we were ready to be parents. The excitement was palpable, it felt illicit even, that first time we took a romantic “tumble” using no contraception, and oh my goodness, how I thought that was it, that lady luck was with us and out of our passion, parents would be created.

It came as a huge shock, after months of getting nowhere, to discover that a nice steak dinner and bottle of wine, to put us in the mood for a spot of copulating under the covers, wasn’t going to get us anywhere. Although, had the conception book advised we’d stand more chance by doing it on top of the covers, you can be guaranteed that’s what we’d have done. Anyone who has been there knows you’ll try absolutely ANYTHING. I stood on my head. I rubbed babies on my ovaries. I drank wheatgrass. I ate millet. I stopped drinking wheatgrass and started watching videos of clowns. We tried in the morning, we tried at noon, we tried every other day, we tried three times a day, we did everything we were told to do, and then some, until eventually an act, which had initially brought us so much joy, excitement and togetherness, began causing sadness, anxiety and became a heart-breaking chore.

And then we went to see our GP.

I won’t bore you with the details but our prognosis was grim; there was no way we were ever going to conceive naturally. And thus began our first round of ICSI – a form of IVF whereby, instead of being left to simply party in a petri dish, each egg is, directly, injected with one lucky hand-picked sperm, in order to further assist conception. At the time I felt like I took this news in my stride and coped exceptionally well, and to some extent I’m sure I did. However, when I look back I’m not entirely sure I was the rational being I thought I was. I took our first cycle incredibly seriously, I cancelled all my plans during the treatment, requested an unpaid absence from work and let IVF utterly consume me. I joined every infertility forum known to man, or woman, and researched and researched. I ate only “IVF friendly” foods, stopped working out and tried everything I could to create a warm and welcoming, peaceful home for my new baby to reside in. I’d kind of figured that we’d identified the problem, had been given the solution and bingo, science would take over from what nature hadn’t been able to achieve for us.

I’d been, fairly, open about our fertility issues from the start of our diagnosis. Friends and family knew and I talked IVF with anyone who asked. It’s my firm belief that infertility should not be a taboo subject. There is nothing to be ashamed about, although, when living bang in the midst of grief, it’s sometimes incredibly hard to keep on having self worth. Yet, to me, couples going through IVF should be saluted, praised and nurtured.

As you’ve probably guessed, round one failed, as did rounds two, three, four and five. We’d initially decided we’d do one round and that would be it. Then it was two, our NHS quota, and by treatment number three, we were so completely entrenched on the IVF merry-go-round that we simply couldn’t get off. We’d keep on going and surely, eventually, the odds had to be in our favour, right?

One thing I hadn’t expected about IVF was how addictive it becomes. Our savings depleted and we started putting money aside each month to pay for our next round. I’d always said that I refused to take a break between cycles, because a break was a waste of time, but after our fifth failed attempt, I knew that neither myself, nor my marriage, was actually going to be okay, unless we took a bit of time out to reconnect and, try to, heal. I was carrying around huge amounts of grief and guilt. I was becoming increasingly depressed, yet venturing further and further into my addiction. It was incredibly difficult for me to take those months off and, at the time, I was so angry at my husband for even suggesting it; it felt like the beginnings of starting to give up. However, I got counselling, we took a holiday, I allowed myself to grieve and we came to the decision that the line had to be drawn somewhere. We couldn’t go on as we had done. Round six was going to be our final attempt and, if we weren’t successful, we’d, somehow, have to learn to live with what that meant for our future.

Infertility can feel incredibly isolating. We had a huge amount of support from friends and family and yet, at times, I remember feeling so alone; the social pariah watching, obsessively, from the side-lines as other people’s pregnancies were announced and new babies were welcomed in to the world. Just not for us. We’d watch films and tv shows, knowing that couples would do the deed once, and end up pregnant. Of course we never did.

Following round six we were successful but, devastatingly, that pregnancy ended in an early miscarriage, however, for the first time ever we’d ended up with two little frozen embryos. Based on our history, and our recurrent failure to conceive, it was agreed that both embryos would be transferred and many fingers would be crossed. Bizarrely, for us, we’d decided to keep this frozen cycle a secret, and even when that word “POSITIVE” flashed up, on approximately ten pregnancy test screens, we still decided to keep the news under our belts, until we reached that all important twelve-week mark. But, as it so often does, fate had completely different ideas and the news was broken early. At eight weeks pregnant I was ambulanced to hospital, for emergency surgery to remove an ectopic pregnancy, whilst surgeons did everything they could to save my life, and that of the baby who had managed to settle in the right place.

And miracles do happen.

Seven months later Samuel joined us.

I’ve often likened the feelings of infertility to the seven stages of grief; disbelief, denial, bargaining, guilt, anger, depression and acceptance, and I know I experienced all of those over what we now refer to as the “dark years”. I also discovered that it’s fine to feel these emotions and cope, or not cope, in whatever way feels best for you. It’s your journey. And, if the truth be told, I’m still working to find acceptance. Even despite having my miracle; the pain, of everything we experienced, is sometimes just too raw.

I remember my mum saying that whether we were successful, or not, I’d always carry infertility with me, that it would shape the person I am to be, and I believe that’s true. I no longer feel defined by my treatment but there’s definitely still a shadow of those emotions I carry around with me. I’ll never forget what we went through to get Sam but I’ll also never forget what a blessing he is.

I have tears streaming down my face but feeling so happy inside after reading your blog. I am currently in ‘limbo land’… I underwent my first IVF (ICSI) last year and it resulted in a ‘complete molar pregnancy’. The whole thing was like a rollercoaster ride…one minute being told that none of our fertilised embryos had developed properly, and then a shocking positive pregnancy test. We turned up for the 8 week scan with the hope that we were going to see our miracle baby/babies, only to be told that what was growing was not an embryo at all. After being given a week to miscarry naturally, and nothing happening, I underwent an ERPC which confirmed the molar. I then had to face the possibility that I may develop cancer and have to undergo chemotherapy… Fortunately for me, my blood results returned to normal within a few months, so I now have a few more months of monitoring before I can go for another round of IVF. However, in my head, it’s just more delays, and instills the view that perhaps I’m just not supposed to ever become a mother.
Reading your journey, however, has given me hope and courage to keep going. I am still having to fight with the mixed emotions that come with this cruel situation though. However, there is something in sharing a story and reading those of others that provide some comfort, reminding me that I am not the only one struggling in this situation…
Thank you

It takes a lot of courage to keep going and I know that, at times, as much as hope can be a great thing, it can sometimes feel quite tragic too and a bit like a curse. I, often, found it incredibly hard to pick myself up from the blows but I always managed to and it’s great that you’re starting to heal too, emotionally and physically, from that first roller-coaster of joy becoming disappointment and sadness. I am sorry to hear that you had a molar pregnancy but incredibly relieved to hear you are fine and didn’t develop cancer.
Throughout my journey to Sam I realised that it’s fine to feel whatever emotion you want to feel at any given time. It’s definitely fine to put yourself first, you need to for self preservation. And you’re absolutely right; it is a cruel situation and one I wish no one ever had to face or go through.
I am pleased you’ve found strength, and comfort, in my story, that’s one of the main reasons why I wanted to share my infertility journey; it’s important for me to let others know that no one is alone in all of this. At times I felt so desperately alone and never want anyone to feel like that.
It sounds like you’re in good hands though with all the monitoring and I know the delays are so incredibly frustrating but it sounds like it’s absolutely what you need to make sure you’re all healthy and well to start another round, if that’s what you decide to do.
Thank you for getting in touch and sharing your story too. I wish you all the best as you head along your journey.

I have just read this post still feeling overwhelmed that I hadn’t realised my dear friend had even stated this amazing blog.
I am lying in a dark room in Italy during Jamie’s nap time and can’t tell you how much I’ve enjoyed this read… swaying between tears and laughter (only to be interrupted once by Jamie waking up way too early and a text message to my husband “he’s awake. I want to cry” …. we all know the repercussions of an overtired toddler!) thankfully white noise did the trick.
Thank you Caro for the courage to write this unbelievably inspiring post. There will me many women out there who will feel just that little bit less lonely. I am very proud of you xxx

Love your post, your story sounds so similar to ours and the way you feel is exactly how I feel. We got our bfn yesterday from our 3rd cycle and I just don’t know whether to get off the merry-go-round or stay on for a bit longer. I’m so fed up with our lives being rubbish, I feel like we’ve got nowhere in the last few years, but to give up is such a difficult choice. Anyway, just wanted to say hi really and tell you that I really related to you post xx

It’s such a tough decision to make and in all honesty, as much as we agreed our 6th round would be our final one, had things ended differently I can’t say what we’d have done. I’m so sorry to hear of your 3rd BFN; they don’t get any easier do they? I’ve pasted a link to an article I found incredibly helpful about how to know when enough is enough and then if you scroll down towards the bottom of the page on the left-hand-side there are some good articles under “Infertility Reflections” (If the link doesn’t work then give me a shout back!) http://www.tertia.org/so_close/2004/05/giving_up_when_.html
Life can completely suck sometimes, there are no magic words to take away your pain and wine only works for the short-term. I hope you’re surrounded by lots of love and support and look after yourself through this sad time xxx

Thank you so much for what you’ve said, it’s really helped and thanks for the link, it’s worked so I’m going to read it tomorrow and have a look through. The first few days always feel worse, and are always the most raw, so I’m hopeful that given some time I will start to feel better about it all. It’s hard because June and July are our worst months because of my brothers birthday and the anniversary of the day he was killed, so it all feels very overwhelming right now. Thank you so much for your support, I really appreciate it xxx