... I was diagnosed with RSD when I was 12 years old. I lived with it for almost 4 years and was bedridden with it. The RSD spread from my right arm to eventually full body. I was misdiagnosed several times. ... (9 replies)

... For me Painman, I didn't have any back problems before my injury. I've walked with a limp from May until December. I probably walk a little better now with using my cane than I did before. They just think the back pain has nothing to do with the RSD. Their opinion is that it is just degeneration in the disc and nothing to do with RSD. My point is that I never had any problems... (12 replies)

... Im disabled due to RSD/CRPS brought on by a work related accident.I'm still out on comp though I did try to return to work. I went for a nuclear bone scan then a tri phase bone scan. Now I await the ok to get another triphase bone scan to get the spread allowed in my case. Jewel. as far as prognosis the best they can do is guess. this beast doesnt have a straight path it... (15 replies)

... hey all.. first I must comment about ..amputation..dont do it.. that is like killing the patient to cure his disease...almost all the reports ive read show RSD spreads like a forest fire in the middle of a drout.. ... (28 replies)

... old all of the time. I know that it helped me. I guess I was very blessed that work comp paid for it but they had done it for another person at the hospital with RSD so to have refused me would have been grounds for a nasty lawsuit so I think that's why it was approved. ... (13 replies)

... Hi folks,
This might be a silly question, but would it help at all to get extra oxygen from an oxygen mask or the little oxygen apparatus that goes into the nostrils?
The extra oxygyn absorbed that way is bound to help increase the oxygen in our system!
Hdladyred,
It's absoluteley amzinag that Worker Comp paid for part of the dives...how on earth did you doc get... (13 replies)

... all those things cost a heck of alot more than paying for some HBOT therapy. HBOT isn't invasive, and it doesn't zap your memory like so many of the medications do. It's pretty frustrating to me. ... (13 replies)

... JD - you can negotiate HBOT as a self pay for a lower rate -the $150 rate is what they charge insurance but they will typically charge less - actually my insurance company (which was work comp) paid $80 per dive - and they were paying Dr. Allen Spiegel who is supposed to be one of the pioneers for HBOT with RSD he is in Florida - I wouldn't recommend attempting to go all the... (13 replies)

... your consideration and your willingness to try and help us. Right now she is still visiting doctors to try and find out why she went blind. so any treatments for RSD are on hold. It has been so frustrating because it appears that nothing is wrong with her eyes. ... (13 replies)

... As with all things rsd, what works for one may not work for another. The lidocaine infusions have helped some rsd'ers. I'm sure it depends on how advanced rsd is, but it never hurts to ask. I'm not sure of the cost but it would be up there because the infusions are done in the hospital. ... (13 replies)

... s talking about desensitization therapy which can be helpful and has gotten many people to the point they won't scream or cringe for having something rest on the rsd affected area. How he suggested it be done is totally WRONG. Anything cold on the affected area is a HUGE No No!! IMO, it's as bad as ice. ... (64 replies)

... I have heard from a few about rsd being made worse by dentist procedures. I've also seen this doesn't have to be the case. Educating the dentist about rsd is the first step. They have to know the precautions that need to be taken and understand them. First and foremost is education. Then, keep the visits short. ... (2 replies)

... I know they had an HBOT chamber at Kent Hospital several years ago because my neighbor's son had treatment in it for complications related to Lyme disease. It it probably still there. ... (4 replies)