All Photos - People Against Childhood CancerRecent public photos on People Against Childhood Cancerhttp://curechildhoodcancer.ning.com/photo/photo/rss?xn_auth=no
Tue, 20 Mar 2018 03:50:23 +0000Tue, 20 Mar 2018 03:50:23 +0000All Photos - People Against Childhood Cancerhttp://curechildhoodcancer.ning.com/photo/photo/rss?xn_auth=no
http://api.ning.com/icons/appatar/2253982?default=2253982&width=50&height=50502253982:Photo:158316JR Motorsportshttp://curechildhoodcancer.ning.com/photo/13879408-1099236906836762-1468162497310113443-n
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by Greg Puryear JR Motorsports just announced the they will be running the #1, #7, and #88 cars with a #ChildhoodCancer Gold Ribbon at Richmond International Raceway in September for the Virginia 529 250 XFINITY Race. Thank you JRM for supporting kids with cancer! #dalejr #nascargogold #forthekidsSun, 21 Aug 2016 13:22:03 +0000JR Motorsports just announced the they will be running the #1, #7, and #88 cars with a #ChildhoodCancer Gold Ribbon at Richmond International Raceway in September for the Virginia 529 250 XFINITY Race. Thank you JRM for supporting kids with cancer! #dalejr #nascargogold #forthekidsGreg PuryearGreg Puryearhttp://curechildhoodcancer.ning.com/profile/GregPuryear2253982:Photo:158222NASCAR Hall of Fame going gold!http://curechildhoodcancer.ning.com/photo/nascarhalloffame-edited-1
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by Greg Puryear The NASCAR Hall of Fame in Charlotte NC, will light up GOLD in recognition of #ChildhoodCancer Month on September 1, 2016. We would love area childhood cancer organizations and advocates to come out and join us for this event! Help show support for businesses that promote Childhood Cancer Awareness. Lighting will be around 8:00pm.
#nascargogold #forthekids
Parking is available in the NASCAR Hall of Fame Parking Deck accessible from the entrance at 500 South Brevard Street.
Additional parking is available across the street from the Hall in the Caldwell lot, located at 501 S. Caldwell Street.Sun, 21 Aug 2016 13:19:17 +0000The NASCAR Hall of Fame in Charlotte NC, will light up GOLD in recognition of #ChildhoodCancer Month on September 1, 2016. We would love area childhood cancer organizations and advocates to come out and join us for this event! Help show support for businesses that promote Childhood Cancer Awareness. Lighting will be around 8:00pm.
#nascargogold #forthekids
Parking is available in the NASCAR Hall of Fame Parking Deck accessible from the entrance at 500 South Brevard Street.
Additional parking is available across the street from the Hall in the Caldwell lot, located at 501 S. Caldwell Street.Greg PuryearGreg Puryearhttp://curechildhoodcancer.ning.com/profile/GregPuryear2253982:Photo:155637#ShopGoldhttp://curechildhoodcancer.ning.com/photo/shopgold
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by PAC2 #ShopGold
Edit
Siblings Making a Difference........
"On Jan. 5, 2008 my brother passed away from a Childhood Cancer.
We need to Step Up and Go Gold for Childhood Cancer! GO GOLD for September with these Childhood Cancer Awareness bracelets. Each bracelet set comes with ONE colored bracelet with gold ribbon charm AND one white seed bead bracelet. $5 from each purchase will go to St. Baldricks in order to fund childhood cancer research." Visit SeaSideSailor Designs at https://www.etsy.com/shop/SeasideSailorDesigns?ref=l2-shopheader-nameFri, 04 Sep 2015 10:00:38 +0000#ShopGold
Edit
Siblings Making a Difference........
"On Jan. 5, 2008 my brother passed away from a Childhood Cancer.
We need to Step Up and Go Gold for Childhood Cancer! GO GOLD for September with these Childhood Cancer Awareness bracelets. Each bracelet set comes with ONE colored bracelet with gold ribbon charm AND one white seed bead bracelet. $5 from each purchase will go to St. Baldricks in order to fund childhood cancer research." Visit SeaSideSailor Designs at https://www.etsy.com/shop/SeasideSailorDesigns?ref=l2-shopheader-namePAC2PAC2http://curechildhoodcancer.ning.com/profile/PAC22253982:Photo:15563680http://curechildhoodcancer.ning.com/photo/80
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by PAC2 Fri, 04 Sep 2015 10:00:38 +0000PAC2PAC2http://curechildhoodcancer.ning.com/profile/PAC22253982:Photo:155635stepup-8http://curechildhoodcancer.ning.com/photo/stepup-8
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by PAC2 Dear Sir,
For the past two years, my right shoulder really ached. I called it my torn rotator cuff. It ached from throwing thousands of footballs to my 14 year old son, Alex John, AJ. Trying to lead him just right on deep post patterns, to keep up with his speed. And, after the last one every time (he’d only let it end after he made a spectacular catch) from catching the big lug as he ran and jumped into my arms, yelling "The Bills win the Super Bowl, the Bills win the Super Bowl!" Just us dreaming. It ached from trying to pitch as fast as I could so he wouldn't hit me, but he always did. It honestly hurt enough so I only slept on my left side and if I rolled over on it, it would wake me in the night. But I didn't care, how could I stop doing those things? I loved it.
My new problem is that over the past years, my shoulder has slowly but surely stopped aching. Now what keeps me awake at night is my broken heart. You see, I have no one to throw those passes to, no one to brush back anymore. Because AJ left us on January 5, 2008, a victim of childhood cancer.
I’ve no idea if you’ve even been on a pediatric cancer floor. Ever walked the halls and seen the smiles or tears on the faces of the little kids as they play on their big wheels. The tiny little masks they wear to ward off infections. How the moms and dads race behind with the ever present IV pole. How the teens hang together and still try to be cool; even though they’re bald and ready to throw up at any time. How the teens have added words like methotrexate and acronyms like ANC to their texting; instead of sweet and LOL. How the babies cry; unable to say what hurts. Or, if you've seen a mom, dad or sibling alone in the break room at 3 am; with their head in their hands, feeling alone, helpless, scared and mad.
I've seen it all and more.
In December 2007 AJ had to ask me, "Dad, what's hospice?"
I’ve seen enough. For the past 8 years, I've advocated, screamed for, cried for and fought for increased awareness of childhood cancers. Here's why:
1) Overall, childhood cancers are the #1 disease killer of US kids, killing more kids every year than every other disease that affects kids combined, and worldwide over 100,000 die annually.
2) Childhood cancers are considered rare, but “Curing childhood cancers would be the equivalent of curing breast cancer in terms of life-years saved”.
3) Despite this huge disease burden, childhood cancer research is grossly underfunded (bit.ly/NCIMoreThan4).
4) 1 in 285 kids will be diagnosed with cancer before age 20, about 16,000/year, and the incidence of childhood cancer has increased about 29% over the last 20 years.
5) About 80% of kids survive 5 years; but 1 in 5 of those 5 yr. survivors will die prematurely due to the original cancer, a secondary cancer or the effects of treatments.
6) When you consider this late mortality (death after 5 years), the long-term survival rate declines to around 66%.
7) Incredibly, 98% of survivors suffer from a chronic health condition by age 45, including pulmonary, hearing, cardiac and other problems related to cancer or the treatments.
8) So, kids need new treatments: “We’ve reached our limitation for how to shuffle the standard chemo agents. We’ve used these drugs as intensely as possible and in as many different combinations as possible, and yet a proportion of kids will still die.”
9) But, kids don’t vote: 96% of Federal funding for research is for adult cancers, leaving only 4% for childhood cancer research.
10) Funding from large cancer organizations doesn’t help too much (e.g., Fri, 04 Sep 2015 10:00:37 +0000Dear Sir,
For the past two years, my right shoulder really ached. I called it my torn rotator cuff. It ached from throwing thousands of footballs to my 14 year old son, Alex John, AJ. Trying to lead him just right on deep post patterns, to keep up with his speed. And, after the last one every time (he’d only let it end after he made a spectacular catch) from catching the big lug as he ran and jumped into my arms, yelling "The Bills win the Super Bowl, the Bills win the Super Bowl!" Just us dreaming. It ached from trying to pitch as fast as I could so he wouldn't hit me, but he always did. It honestly hurt enough so I only slept on my left side and if I rolled over on it, it would wake me in the night. But I didn't care, how could I stop doing those things? I loved it.
My new problem is that over the past years, my shoulder has slowly but surely stopped aching. Now what keeps me awake at night is my broken heart. You see, I have no one to throw those passes to, no one to brush back anymore. Because AJ left us on January 5, 2008, a victim of childhood cancer.
I’ve no idea if you’ve even been on a pediatric cancer floor. Ever walked the halls and seen the smiles or tears on the faces of the little kids as they play on their big wheels. The tiny little masks they wear to ward off infections. How the moms and dads race behind with the ever present IV pole. How the teens hang together and still try to be cool; even though they’re bald and ready to throw up at any time. How the teens have added words like methotrexate and acronyms like ANC to their texting; instead of sweet and LOL. How the babies cry; unable to say what hurts. Or, if you've seen a mom, dad or sibling alone in the break room at 3 am; with their head in their hands, feeling alone, helpless, scared and mad.
I've seen it all and more.
In December 2007 AJ had to ask me, "Dad, what's hospice?"
I’ve seen enough. For the past 8 years, I've advocated, screamed for, cried for and fought for increased awareness of childhood cancers. Here's why:
1) Overall, childhood cancers are the #1 disease killer of US kids, killing more kids every year than every other disease that affects kids combined, and worldwide over 100,000 die annually.
2) Childhood cancers are considered rare, but “Curing childhood cancers would be the equivalent of curing breast cancer in terms of life-years saved”.
3) Despite this huge disease burden, childhood cancer research is grossly underfunded (bit.ly/NCIMoreThan4).
4) 1 in 285 kids will be diagnosed with cancer before age 20, about 16,000/year, and the incidence of childhood cancer has increased about 29% over the last 20 years.
5) About 80% of kids survive 5 years; but 1 in 5 of those 5 yr. survivors will die prematurely due to the original cancer, a secondary cancer or the effects of treatments.
6) When you consider this late mortality (death after 5 years), the long-term survival rate declines to around 66%.
7) Incredibly, 98% of survivors suffer from a chronic health condition by age 45, including pulmonary, hearing, cardiac and other problems related to cancer or the treatments.
8) So, kids need new treatments: “We’ve reached our limitation for how to shuffle the standard chemo agents. We’ve used these drugs as intensely as possible and in as many different combinations as possible, and yet a proportion of kids will still die.”
9) But, kids don’t vote: 96% of Federal funding for research is for adult cancers, leaving only 4% for childhood cancer research.
10) Funding from large cancer organizations doesn’t help too much (e.g., PAC2PAC2http://curechildhoodcancer.ning.com/profile/PAC22253982:Photo:155634stepup-3http://curechildhoodcancer.ning.com/photo/stepup-3
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by PAC2 What's our basis for demanding #MoreThan4 from the National Cancer Institute?
One important piece of data is that an average of 71 years of life is lost when a child dies of cancer. It’s one of 3 good reasons why 4% funding from NCI is not enough:
1 - they are kids
2 - 71 life-years lost when a child dies of cancer
3 - they are kids!!
Besides the obvious, the years of life lost is important because medical economists use it to calculate the total "burden" of the disease, or the total "person-years-life-lost" (PYLL) for the various cancers, adult and children. It's essentially a normalizing of the data to allow comparison of the burden of different diseases.
This is what NCI says about it: "Death rates alone do not provide a complete picture of the burden that deaths impose on the population. Another useful measure that may add a different dimension is PYLL — the years of life lost because of early death from a particular cause or disease. PYLL caused by cancer helps to describe the extent to which life is cut short by cancer. On average, each person who died from cancer in 2007 lost an estimated 15.4 years of life." Kids, of course, average 71 years of life lost.
PAC2 has conservatively (we only used 66 years lost for children) compared NCI funding dollars to the number of Person-Years-Life-Lost (PYLL) for the top killer cancers of adults (excluding lung cancer) and childhood cancers. (e.g., $ funded/PYLL) Below find historic NCI data for the two leading causes of death for adult males and females (excluding lung cancer) and childhood cancers.
The data shows that:
- Prostate cancer receives over $10,000 per year life lost, even though the average age of diagnosis is 68 and 97% of those males survive five-years, which is beyond the average life span for males.
- Colo-rectal cancers receive nearly $5,000 per year life lost, even though the average age of diagnosis is 71, meaning on average each case would only live one year.
- Breast cancer, with 275,000 total life years lost, receives $599.5 million, or $2,172 per year life lost.
- Childhood cancers, with 205,008 total life years lost, receives $192.8 million, or $940 per year life lost.
THAT is what Dr. Eugenie Kleinerman - Head, Division of Pediatrics, MD Anderson Cancer Center means when she says: "Curing childhood cancer is the equivalent of curing breast cancer in terms of productive life years saved."
And THAT is why we need Congress to #StepUp and direct more funding for childhood cancer research. To account for the PLYY of our kids, and simply fund childhood cancer research to the level it deserves based on the disease burden. That, and the fact they are kids..........
The full PYLL post on NCI funding is found at http://bit.ly/ncifundingmoreliesdamnliesandstatisticsFri, 04 Sep 2015 10:00:37 +0000What's our basis for demanding #MoreThan4 from the National Cancer Institute?
One important piece of data is that an average of 71 years of life is lost when a child dies of cancer. It’s one of 3 good reasons why 4% funding from NCI is not enough:
1 - they are kids
2 - 71 life-years lost when a child dies of cancer
3 - they are kids!!
Besides the obvious, the years of life lost is important because medical economists use it to calculate the total "burden" of the disease, or the total "person-years-life-lost" (PYLL) for the various cancers, adult and children. It's essentially a normalizing of the data to allow comparison of the burden of different diseases.
This is what NCI says about it: "Death rates alone do not provide a complete picture of the burden that deaths impose on the population. Another useful measure that may add a different dimension is PYLL — the years of life lost because of early death from a particular cause or disease. PYLL caused by cancer helps to describe the extent to which life is cut short by cancer. On average, each person who died from cancer in 2007 lost an estimated 15.4 years of life." Kids, of course, average 71 years of life lost.
PAC2 has conservatively (we only used 66 years lost for children) compared NCI funding dollars to the number of Person-Years-Life-Lost (PYLL) for the top killer cancers of adults (excluding lung cancer) and childhood cancers. (e.g., $ funded/PYLL) Below find historic NCI data for the two leading causes of death for adult males and females (excluding lung cancer) and childhood cancers.
The data shows that:
- Prostate cancer receives over $10,000 per year life lost, even though the average age of diagnosis is 68 and 97% of those males survive five-years, which is beyond the average life span for males.
- Colo-rectal cancers receive nearly $5,000 per year life lost, even though the average age of diagnosis is 71, meaning on average each case would only live one year.
- Breast cancer, with 275,000 total life years lost, receives $599.5 million, or $2,172 per year life lost.
- Childhood cancers, with 205,008 total life years lost, receives $192.8 million, or $940 per year life lost.
THAT is what Dr. Eugenie Kleinerman - Head, Division of Pediatrics, MD Anderson Cancer Center means when she says: "Curing childhood cancer is the equivalent of curing breast cancer in terms of productive life years saved."
And THAT is why we need Congress to #StepUp and direct more funding for childhood cancer research. To account for the PLYY of our kids, and simply fund childhood cancer research to the level it deserves based on the disease burden. That, and the fact they are kids..........
The full PYLL post on NCI funding is found at http://bit.ly/ncifundingmoreliesdamnliesandstatisticsPAC2PAC2http://curechildhoodcancer.ning.com/profile/PAC22253982:Photo:155633stepup-star acthttp://curechildhoodcancer.ning.com/photo/stepup-star-act
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by PAC2 Fri, 04 Sep 2015 10:00:37 +0000PAC2PAC2http://curechildhoodcancer.ning.com/profile/PAC22253982:Photo:155332Long Term Outcomeshttp://curechildhoodcancer.ning.com/photo/long-term-outcomes
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by PAC2 Fri, 04 Sep 2015 10:00:36 +0000PAC2PAC2http://curechildhoodcancer.ning.com/profile/PAC22253982:Photo:155331#CNNDebatehttp://curechildhoodcancer.ning.com/photo/cnndebate
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by PAC2 Visit http://www.cnn.com/…/…/submit-questions-september-gop-debate to submit a question for the upcoming GOP Presidential Candidate debate. ‪#‎CNNDebate‬
September is National Childhood Cancer Awareness Month. Cancer kills more kids than all other childhood diseases combined. Newsweek calls it unprofitable and ignored. The National Cancer Institute directs less than 4% of its budget to childhood cancer research, yet Dr. Eugenie Kleinerman, Head of the division of pediatrics at the Children’s Cancer Hospital at M.D. Anderson Cancer Center says "Curing childhood cancer is the equivalent of curing breast cancer in terms of productive life years saved." In the richest nation on earth, with the highest standard of living, the greatest world power, the country that went to the moon - we as parents have to rely on lemonade stands, cookie sales and parents shaving their heads and running marathons to fund research to stop the #1 killer of our sons and daughter.
Two questions - Did you know it was Childhood Cancer Awareness month and what would you do to make childhood cancer a national priority?Fri, 04 Sep 2015 10:00:36 +0000Visit http://www.cnn.com/…/…/submit-questions-september-gop-debate to submit a question for the upcoming GOP Presidential Candidate debate. ‪#‎CNNDebate‬
September is National Childhood Cancer Awareness Month. Cancer kills more kids than all other childhood diseases combined. Newsweek calls it unprofitable and ignored. The National Cancer Institute directs less than 4% of its budget to childhood cancer research, yet Dr. Eugenie Kleinerman, Head of the division of pediatrics at the Children’s Cancer Hospital at M.D. Anderson Cancer Center says "Curing childhood cancer is the equivalent of curing breast cancer in terms of productive life years saved." In the richest nation on earth, with the highest standard of living, the greatest world power, the country that went to the moon - we as parents have to rely on lemonade stands, cookie sales and parents shaving their heads and running marathons to fund research to stop the #1 killer of our sons and daughter.
Two questions - Did you know it was Childhood Cancer Awareness month and what would you do to make childhood cancer a national priority?PAC2PAC2http://curechildhoodcancer.ning.com/profile/PAC22253982:Photo:155228my son Antjonyhttp://curechildhoodcancer.ning.com/photo/my-son-antjony
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by Char Lafortune AML diagnosed at 7 two remissions passed away at 12 on 9 January 15Sun, 19 Jul 2015 02:31:48 +0000AML diagnosed at 7 two remissions passed away at 12 on 9 January 15Char LafortuneChar Lafortunehttp://curechildhoodcancer.ning.com/profile/CharLafortune