This site is dedicated to saving Chloe's life
and the lives of other little kids suffering from
Vanishing White Matter disease, by raising
awareness and much needed funds to Find A Cure.

Vanishing White Matter Disease (VWM) is an extremely rare, genetic, degenerative, terminal brain disease that affects mostly children. This disease is devastating, with most patients diagnosed between the ages of 2 and 6 years old. In a very short period of time, it causes the inability to walk, talk and eat as well as blindness, deafness, loss of motor skills, mental retardation, spasticity, seizures, and coma and is followed by death often before reaching teenage years. A small bump to the head, a temperature, a cold or even a fright could end Chloe’s life. There are only 7 known cases in Australia and around 172 living worldwide. There is currently no treatment or cure available.

Donations

Your donation will help save a little girl's life.

Chloe is a gorgeous 7 year old girl, suffering with Vanishing White Matter Disease. Without a cure, Chloe will experience a lot of pain and suffering, lose her ability to see, hear, eat, experience mental retardation, spasticity and die...usually before reaching her teenage years.

You can make a difference.

Doctors are working on a cure, with promising research taking place however funding is urgently required to speed up this process. For further information on our fundraising milestones and what the funds will be used to purchase please click here.

Help us fund the cure in time to save Chloe and other children like her.

A5 Flyer and A4 Logo PDF

Workplace Giving

Workplace Giving is a simple, effective way for employees to regularly donate to charities that are entitled to receive tax deductible donations and have deductible gift recipient status (DGR) – which we have!

Talk to your HR about setting this up and the possibility of your Employer matching your donations.

Upcoming Events

Chloe's Logo

Chloe’s grandfather (Da), painted a rainbow on her bedroom wall
to put a smile on Chloe’s face and make it a brighter, happier room.

It seems fitting that the rainbow has long been recognized as a symbol
of hope and it is this hope that keeps us persistent and tenacious
in our pursuit of a cure, not only for Chloe, but also for all the little
children around the world.

The blue ribbon is a symbol of awareness for genetic disorders.

Thank you very much to Kirsty Ravello-Roca for designing such a beautiful
logo for Chloe and all the other kids affected by VWM around the world.

RAFFLE 2017 - Terms and Conditions

Terms & Conditions:

Prizes will be drawn at Wendy’s Milk Bar Figtree Grove Shopping Centre, Kiosk 7, Figtree Grove, Cnr Princes Highway And The Avenue, Figtree NSW 2525 on Sat 1st July @ 2pm. Winners will be published on the www.chloesaxby.com.au website within 7 days of the draw.

General Terms & Conditions:

Valid passports and any travel visas are the responsibility of the prize winner. Frequent Flyer points are not applicable. Prize expiry dates cannot be extended. Prizes are not redeemable for cash and not transferable. Raffle not open to persons under 18 years. Other terms & conditions may apply.

1st Prize: Virgin Australia: Airfares are valid for travel until 31 March 2018. Tickets are for 2 people to travel together on the same booking. Flights are subject to availability & must be booked at least 7 days prior to travel. Outrigger Fiji Beach Resort & Castaway Island: Valid until 31 March 2018. Not valid during peak season (08th-18th April 2017, 01st -17th July 2017, 23rd 30th Sept 2017, and 26th Dec 2017 – 06 January 2018) and is subject to room availability. Captain Cook Cruises - Valid until 31 March, 2018. Cruise Certificates are not available on special event cruises. Photo ID is required to cruise. Activities
or services not normally included in the cruise fare and fuel surcharges are your own responsibility. Cruise certificates are non-transferable and cannot be used in conjunction with any other special offer. If a certificate is lost prior to its expiry there is a reissue administration fee of $50 which is non-refundable. All bookings are subject to the terms and conditions of the Passenger Cruise Contract and/ or Conditions of Carriage. Unused or expired cruise certificates cannot be refunded or exchanged.

2nd Prize: Prize is valid for 5 nights for 2 adults and can only be redeemed at Club Med Kani. Must be redeemed before 31 May 2018 and dates are subject to availability. Must be booked within 1 month before departure. Blackouts over peak travel periods apply, including but not limited to Christmas & New Year, school holidays, Chinese New Year & Golden Week, and other peak travel periods. Prize does not include transfers between the airport and Club Med Kani or childcare services, local expenses, tours and spa treatments that are offered at extra cost. Helloworld voucher not redeemable for cash, foreign currency or cash passports. For use on any International or Domestic holiday package. Voucher to be redeemed by 31 May 2018.

3rd Prize: Non-replaceable/ Non-upgradeable/Non-Changeable. Further fare rules may apply. All taxes payable, airline and government are the responsibility of the prize winner. Winner needs to be at least 18yrs of age. The prize winner and their guest must travel together and share the same itinerary. Seats are subject to availability. Entire travel must be completed by 31 May 2018. Travel is NOT permitted during the following periods: 8 April - 26 April 17, 1 July - 17 July 17, 23 September - 9 October 17, 8 December - 30 January 17. Low season dates available only in 2018. Travel dates need to be booked & ticketed within 30 days of receiving the prize. Visitors to the USA will need to apply for a Visa Waiver via the Electronic System for Travel Authorization (ESTA) prior to travelling to the United States, a fee will apply.