Saturday, December 13, 2008

Leave it to Kristi's college roommate to take care of Christmas this year. Maura and Mike Flint are dear friends of ours and have been for 20+years. We've shared laughter and tears, dogs and apartments. We've watched each other have kids and we've traveled over seas to visit each other.

Maura and Mike took care of some of the middle-of-the-night prayer vigil for Jessie this summer while she was at Johns Hopkins in Baltimore, MD. They were living in England at the time, but are now back state side. They've always been there for us, and now they've helped us find some Christmas.

Thanks guys for the beautiful Nativity scene. It is exactly what I was looking for the other day, but couldn't find. It is an awesome reminder for us to reflect upon the birth of Jesus, our Lord and Savior.

Emmanuel - God with us!

I heard a really funny story from another good friend (whom we've only met once, that's a blog entry of it's own..check somewhere around June 22nd, 2008 blog). Anyway, she said that her youngest finally stopped calling the infant in this scene, "the baby cheeze its". That cracks me up. Kids are great.

Thanks again Mike and Maura! We love you guys! God Bless You and Merry Christmas!

2 comments:

My great grandbaby Savannah has been diagnosed with Rasmussen in November. We have been using a great Pediatric Neurologist in Baton Rouge, LA. We were in the hospital for 11 days, after she had a bad seizure in her sleep one nite. They first thought it was a stroke, after doing 3 MRI, MRV, MRA, 5 Spinal taps, 3 EEG, Called in a heart specialist and many other test, this is what she thinks it is. She started her on seizures meds call Kepper and it seems to be working so far, she still has a few small ones. She also, started giving her IVIG. She had two days of IV's in the hospital and two the first 2 days in January. After much research our doctor wants us to see Dr. Vining. Which as you know is hard to get an appointment. We finally got thru to her office on Friday and they havent even looked at our tape that was sent up yet. After begging they lady called back and said that the doctors wants to talk to our doctor, because she thinks it is vascular and she is too young. Our doctor was off on Friday and will call her back on Monday. By reading your blog on Jesse, I was wondering if you could give us some advice on how to get things done faster and your opionion on all of this.ThanksLinda Rembert1-225-261-6052 home1-225-610-4988 celllrembert1@bellsouth.netBaton Rouge, LouisianaPS. I am so happy that Jesse is doing great.

About Me

Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain)
This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008.
This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before.
Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.