Living with PH

Pulmonary Hypertension (PH) is a disease that can put a tremendous strain on your life, whether a loved one has been diagnosed or you have been diagnosed yourself. For a lot of patients it has taken quite a long time to finally get a correct diagnosis, which is the first step to receiving targeted therapies to relieve their symptoms and to improve their quality of life.

PHA Europe and also the patient association in your country are aiming to help you to cope with your condition. It can help to learn that there are others who are facing the same challenges as you.

Look up our “Affiliates” section to see if there is a PH patient association in your country and get in touch with them to see what support and resources may be available for you.

In the different sections of this website you will find useful information about PH and its various forms, including classification, diagnosis, treatments, surgical options and new clinical trials, as well as information about the activities of PHA Europe.

Look up “Our PH Library”, a joint project PHA Europe and the PHA US, which contains over 200 high quality resources developed by patient groups around the world, in 24 languages, with a very simple search function for information on specific topics.