Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

Geeeez i hope we get a cure soon?..i lost a friend to this disease,she couldnt do it anymore...there has to be a light for us all,there has to be...all we can ever do is go forward to look back is just to painful...huggs..

I already put a call into my PCP and Oncologist to find out as soon as this XRMV has a blood test available to the public.

In one of the articles they mention that XRMV can make non active viruses active so
in the mean time I'm taking a copy of the list of viruses Dr. Johnson suggest and I'm going to ask my doctor to do blood test for them while I waiting for the blood test for XRMV to become avaliable. Maybe I can get a jump start on this XMRV virus with the meds that are already available to treat the viruses that Dr Johnson suggest if I test positive for any of them.

I live in MA and they have a number of programs to help people to learn new skills and help them get jobs.

I maybe over optomistic but I think they are on the right track here. And I think the benifits are going to be seen for a number of different illnesses. Who knows if this could be used as a screening test for people that are at a higher risk of getting different cancers or other illness and by treating this before it reaches the cancer or illness state. Maybe a yearly blood test to go along with a physical.

It will probably take sometime for treatments or cure to work and we will have to learn to live again as healthy people. I'm a little scared about what the furture might hold but I think not being sick all the time will be great and I think once we get well we will never take things for granted It will be a chance to explore new options and we can start thinking now.

Also if you are on SSI I think they also have a program to help you rejoin the work force if you become well enough to work again.

The doctors will just adjust and do the new blood test and prescribe the new antiviral meds. Also it will probably take awhile to come up with a vaccine to prevent this virus from spreading. Because of the number of illness this virus can be linked to the research will be pushed to the front burnners.

They have found a virus XMRV that has been linked to CFS and other illnesses. Right now they are working to get a blood test that can be done at the doctors office or labs for the general public and they are working on finding a treatment or cure. This virus is a major break through but they don't have a cure yet.

Also because this virus is found in the blood there are concerns about the national blood bank so they will be pushing for a blood test and better treatments or cures.

Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...

So my daughter, who will be 30 in a few months, says she thinks she has varicose veins, as she can't figure out what else it could be. Only in one leg, and is so bad it is hard to sleep at night. She is in excellent shape, really exercises a lot, and eats well... not at all overweight. Anyone else have any issues with this? I did find that it can go with PKD. She was reading that there are...

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