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Sunday, August 12, 2012

Recovering

It has been a great weekend! Kaylie hasn't had a fever since Thur. evening, her throat looks 100% better, and her pediatrician texted me today to let me know that her mono titers were negative! Just a bad, bad bug! She has been feeling a lot better lately. She has been playing a lot in her room with barbies, calico critters.. what not, not really running around... but not laying around either. I have to remind her to take it easy. There has been a couple evenings she has had small headaches. Nothing like what she use to have. But, this is normal recovery for all this. A couple of her bottom steri strips and a middle one have come off. So far her incision looks really good! All of them are really loose, so probably this coming week more will be coming off. I saw this pic on Pinterest.... couldn't be any more fitting!

I as a parent feel like I am finally recovering from our trip, and getting back home into the swing of things. My nerves have come down a lot about her being around Abby & Mason. We haven't been out in about, mostly due to her being so sick, as soon as we got home. We went to my parent's Friday evening, she needed it... I think she was starting to feel a little cabin fever. I am trying not to think to much into Mason's condition... I really don't want to read a lot into it, until we get this other MRI done, and talk to Dr Rekate about it. It does worry me, I have joined a couple groups on Face Book for Basilar Invagination. I've been thinking a lot about school, and if i still want to go into nursing. The past few months with Kaylie's whole ordeal had me really questioning everything. Ben kept reminding me that it is so different when it's "your" child. I have two friends that are in nursing, and have talked to them recently about all this. I "Thank" them a lot.... because I think I just needed to hear someone tell me not to give up, that i would make a great nurse.... and to give me back that inspiration, that I see in both of them. My class for the fall doesn't start till Oct. it's just a small 8 week, online course. i think its just right, for where we are at in our family right now. I don't think I could handle anymore.

I'm going to start working on a new section for this blog... "Related Conditions". There are a lot of other conditions that can go along with or cause Chiari. Kaylie just has Chiari, and Mason just Basilar Invagination. But since I have other come to this blog... I thought it would be helpful. It will probably take me some time to get it all up.

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I am the owner & writer of this blog. I am also the mother of Kaylie, Mason and Abby. This is a blog of our personal story dealing with Chiari, and related conditions. This is not to substitute for medical advice, please see a physician for that... this is just our story and our experiences.

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