Thursday, August 11, 2016

Back-to-School Checklist for Parents of Kids With Special Needs

You may have barely made it through the transition from school into summer, and guess what? It’s time to start the long and traumatic transition from summer back to school. For y’all, anyway. I am gloriously free of kids going to school at the moment, and I can use all the psychic energy I’d have put toward getting their programs in order to find them a job, please a job, any job. But that’s another post. When my kids were of school age, I remember well how I spent the last sweet weeks of summer: calling the special education department day after day after day, bellowing Where is that stuff you promised? Swear to me that it will be in place on the first day! Swear it! (Spoiler: It wasn't.)

Based on those years of sad experience, I can tell you that there’s lots more to back to school for parents of kids with special needs than just picking up some notebooks and outfits. Add these 27 items to your to-do list. And don’t ever assume that because you made sure it was in the IEP, you never have to check it again. Ha! Wouldn’t that be nice?

If your child needs a one-on-one paraprofessional, make sure the school remembers that and isn’t just planning to hit the pause button on your child's disabilities for a few weeks while they figure their staffing out.

If your child needs special equipment, or people with special training, or ramps, or elevators, or therapists, or specialists, call and make sure they will be in place. Call again. Call daily.

Just because your child has always taken the bus does not mean that this year the bus will show up. Call the transportation department and make sure.

And that car seat your child is supposed to have for said bus? Make sure they have that too.

Make sure the school nurse knows about your child's medical special needs.

Make sure there’s a school nurse.

Make copies of your child’s IEP to distribute to all those people you’d just assume would have been given it. Like the teacher.

Put together a “greatest hits” version of the IEP for the people who do need to know about specific things, do not need to know everything, and would never ever read that whole humongous gob of paper anyway. Like the gym teacher. The specials teachers. The lunch lady. The paraprofessionals. The bus driver. The bus aide. And basically everybody whose misinterpreting of your child could cause problems. So, basically everybody.

If you’ve received assurances about your child having a particular teacher, a particular classroom, a particular school, call the special-education office to make sure. And keep calling. Changes happen right up until (and right on past) the last minute.

Stock up on special supplies: the huge binder that keeps your kid from having to go to her locker; the spiral notebook with the spiral covered so your kid can’t pick it apart; the notebooks color-coded for different subjects and purposes.

Condense your philosophy on the best way to handle your child into a persuasive ten-page intro to get the teacher off to a good start. Then cut it down to five pages. Then two. Then one. Brevity is important.

Make copies of twenty or thirty Web articles and book pages to go along with your one-page intro. Backup is important.

Worry that you’re giving the teacher too much to read right at the hectic start of the year.

Worry about everything you left out of your intro for the teacher. Worry that the teacher will be offended by it, or ignore it entirely. Worry that you have a reputation for making excuses for your child and telling teachers how to do their job.

Worry that the school supplies you got won’t work this year, or will make your child look different, or will go into a locker or desk and never come out.

Worry that no matter how many times you call, your child will be in the wrong class, with the wrong teacher, in the wrong school. With that one kid who sets your kid off.

Worry that your child’s clothes are all wrong, will make him/her look odd, will be uncomfortable, will be against some new dress-code rule.

Worry that the need-to-know IEP cheat sheet info you’ve given to all those school people will either be ignored or get you in trouble.

Worry that you’ve forgotten someone who should have your child’s IEP but won’t unless you provide it yourself, and your child will suffer for it.

Worry that just because there was a school nurse when you called doesn’t mean there will be a school nurse on the first day of school. Or the second, or the third, or …

Worry that the nurse will forget your child’s special needs, or not care, or overreact, or underreact, or farm that part of the job out to an untrained paraprofessional.

Worry that the car seat that comes on the bus will be the wrong size, or the wrong brand, or broken.

Worry that no matter how many times you call, the bus still won’t come. Or will come too early. Or too late.

Worry that all the equipment and trained personnel and building features your child needs just to, you know, be in a classroom and function will seem like silly little details to the people responsible for them.

Worry that if there is a paraprofessional in place for your child, he/she will be awful, or untrained, or inappropriate in some way. Or, you know, missing.

You know what? Just lie in a dark room from now until next June with a wet rag over your eyes, worrying. That’s a full-time job right there.

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About My Family

My husband and I adopted two children from Russia in 1994: a 4.5-year-old girl with language delays and a 21-month-old boy with fetal alcohol effects. They're 26 and 23 now, and we're all surviving nicely.

Expand Your Advocacy

50 Ways to Support Your Child's Special Education looks at all those things you can do outside of those annual IEP meetings to promote success -- from getting a better start in the morning to helping with homework to communicating with the school. Parents have the power to make a difference, and I've got some great ideas on how to do that. Ask for the book at your local bookstore, or buy it online from Amazon or Barnes & Noble.