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Westyn's Light has been postponed to August 15 & you can run it virtually now!

New Date: August 15, 2020

It is with optimism and hope that by making our May 30th race virtual and in turn postponing physical race date to a future summer date that we at Westyn’s Light can allow even more people to attend such an amazing event. For those who have already signed up we hope that you will choose to run on your own and upload pics and race times so that we can all celebrate together. If you would rather wait and run at the physical date in the future that is great too, we will be updating as soon as that date has been solidified. Medals and shirts will be given out prior to physical race date and mailed to those who are only participating virtually upon completion of physical race date. We appreciate All the tremendous support that has come from Westyns race and we encourage even more participation moving forward to bring awareness for CAH. Oh and for you over achievers you can do the virtual and the physical race !!!

You do not need to do anything with your registration. You will automatically be transferred to the future event.

How the Virtual Run WorksRun your selected distance between May 23rd & May 30th. Upload your results by midnight May 30th and we will post the results on May 31st. Please upload your results only once.

There is an Online Auction that will still be taking place through the month of June. please check out westynslight.com for more info!!!

Feel free to email any questions or concerns directly to loraengel@westynslight.com

Place

W330 N5113 County Road C
Nashotah Park
Nashotah, WI US 53058

Description

WESTYN’S LIGHT was created to keep his light shining through rare disease education for communities, emergency medical responders, CAH awareness, medical device development, and research for a cure. Please visit westynslight.com for more information

Westyn’s Light Story

December 21, 2019 was a day that will be etched in the minds of so many. It was the day the Engel family’s lives changed forever.

Westyn King Engel was born June 1, 2015, after a routine newborn screening he was diagnosed with a RARE genetic disease called CAH or Congenital Adrenal Hyperplasia due to 21-hydroxylase deficiency OR Classical CAH Salt Wasting. This is an adrenal deficiency of cortisol as well as a sodium component making it not only extremely rare, but life threatening. It falls into an endocrine disease and there is no known cure.

Because of his inability to produce what is also called the stress hormone (Cortisol) any illness could cause him to go into an adrenal crisis. We treated his illness with a few different medications to provide what his body could not produce.

There is so little information on this disease for communities, families, and patients as well as emergency medical responders. On the morning of December 21, 2019 we woke our son to find him in his bed having multiple seizures, we called 911, but at 9:41am on December 26, 2019 we watched the doctors remove our precious little boy from life support.

We did everything we were supposed to do. The cause of death was listed as brain death due to: HYPOGLYCEMIC SEIZURES…. Our jaws hit the floor, blood sugar was never brought up in Drs appts as being a huge thing to watch out for, we did beg our Drs for a RX for a glucometer but only because of our parental instincts kicked in….Unfortunately the importance of blood sugar was not made to us in his care plan.

You see only after Westyn’s passing did we discover just the correlation of CAH and Hypoglycemia. Other countries around the World are doing studies on these affects, yet little is made known here in America, and that needs to change. All families who need readers should have access to the tools, emergency medical responders need to know how these seizures play into a child with this rare disease, more education is needed.

Westyn loved Jesus and the night before his incident he made us a lantern for Christmas “Mom now my light will shine forever” Little did we know just how much this phrase would mean to us.

WESTYN’S LIGHT was created to keep his light shining through rare disease education for communities, emergency medical responders, CAH awareness, medical device development, and research for a cure.

Westyn loved to run especially in his “FAST” shoes so we hope you’ll join us in sponsoring a dream of one little boy to make his light shine forever…

What is CAH?

Congenital adrenal hyperplasia (CAH) is a group of inherited genetic disorders that affect the adrenal glands, a pair of walnut-sized organs above your kidneys. A person with CAH lacks one of the enzymes the adrenal glands use to produce hormones that help regulate metabolism, the immune system, blood pressure and other essential functions.

Course

Over 90% of the race is through Nashotah Park's forests and past both Forest Lake and Grass Lake. The trails are wide and are groomed year round. The 5K is one loop and the 10K is two loops.

Nashotah ParkW330 N5113 County Road CNashotah, WI 53058

Tshirts

The shirts are dry wick and those registered before noon April 20th are guaranteed a custom race shirt. After that, shirts be available while on line supplies last. Any extra shirts will be distributed after the race on a first come first serve basis.

Packet Pickup & Schedule

PLEASE BRING YOUR RECEIPT WITH YOU!

8:00-9:00 am packet pickup8:45am Kiddos 1K9:00am run start

Get a Refund By Referring Friends

At registration checkout, you will be given the option to share to Facebook that you've registered for a super fun event with SCSE! For every 3 people you get to register for the same event using your unique link, you'll get $10 back from your registration.

On your emailed registration receipt, there will be a registration link that you can forward to your friends to let them know they should join you on your next adventure! For every 3 friends you get to register for the event using your unique email link, you'll get $10 back on your registration!

Aid Station

There is one aid station on the 5K course and three on the 10K course.

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