State Spotlight: Maryland

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Overview​

Maryland is the 5th most densely populated state in the nation. The state has five distinct regions with some that are very rural. Maryland's team consists of the Parent's Place of Maryland (Maryland's F2F) and the Maryland Title V CYSHCN Program. Project partners include the Maryland Chapter of the American Academy of Pediatrics, Pathfinders for Autism, and Johns Hopkins School of Public Health.

To learn more about Maryland's work, visit the Maryland Consortiumfor Children with Special Healthcare Needs here.

Project Activities

The grant aims to:

Strengthen the leadership and infrastructure needed to identify Maryland CYSHCN-ASD/DD by 24 months and ensure access to a family-centered medical home and comprehensive, coordinated care.

Reduce barriers to screening, referral and diagnostic services and increase access to medical homes that coordinate care with pediatric subspecialties.

Support the development of family/professional partnerships among CYSHCN-ASD/DD and the system of care.

Screening and Beyond Quality Improvement Learning Collaborative

Maryland will achieve their goals by establishing a learning collaborative to build a state level quality improvement (QI) infrastructure. The goal of this learning collaborative is to reduce barriers to screening, referral and diagnostic services and increase access to medical homes that coordinate care with pediatric subspecialties. A novel component of the collaborative is the dual role of participating Parent Partners, who are both involved in the quality improvement process and provide technical assistance to families regarding resources available in the community and family-professional partnerships.

ASD/DD Planning Grant

From 2011-2013, the Maryland team implemented an ASD/DD planning grant to develop a comprehensive statewide plan for Maryland to improve the system of health and related services for CYSHCN who have AD/DD as defined by the six core outcomes/ standards of care for CYSHCN. For resources and information from the planning grant, click here.

Successes & Lessons Learned

Strengthening productive working relationships among stakeholders has been instrumental to the success they have achieved thus far. Challenges included recruitment of practices from rural areas and matching Parent Partners to certain practices.

To access more of Maryland's resources through SPHARC's search engine, click here.