cracking wide open on the radio

Flashback September 26, 2014: I write and share my experiences to give purpose to this Alzheimer’s journey of Mom’s and mine. There must be a reason (I reason) for our struggle and suffering. Perhaps you are part of the purpose! I hope My Alzheimer’s Story captivates, inspires and/or comforts you. If it does, please share the love like I am 🙂

I’m so pleased people are being touched by our story (see purpose above). In a couple of weeks I’m “guesting” at a half-day college class; I intend to share and discuss some of the audio and video clips from the year I cared for Mom in her own home. I wonder how the students will respond? Will they react like Alex did? Will they feel the joys and sorrows?

Maybe all of us will crack wide open. Maybe that would be a good thing.

I just lost my wonderful dad, from this horrific disease, March 8, 2014. The wound is still so fresh and raw. We managed to care for him, at home, until 3 months prior to his death. It was impossible, after that, to do so any longer. He never slept. My mother’s unwavering love and devotion to him will remain with me forever. Still, I am tortured by guilt for resenting going daily to nursing home, although I still did. Even though I told him repeatedly how much I loved him, you always wonder if you could have done more, been a little more patient. Guilt over the relief when he finally did pass are the demons that haunt me at night!!!

Oh Robin 🙁 Crying for you and your pain 🙁 I’m sure he knew how much you loved him and appreciated at his core everything you did. Could we all do more? Maybe. But we are only human. The one positive thing I can see about this disease is how it allows some people — I am one of them — to experience unconditional love in the most difficult circumstances. This is a great blessing for which I am thankful. And yes it is crushing to watch someone you love die a slow death that robs them of themselves bit by bit. So far I still see my Mom clearly despite the fact that she’s in the later stages. Also a blessing. I hope you find peace and forgiveness moving forward. I’m so glad you are following our story even though it must be painful for you. Thank you so much. <3

Congratulations as your network widens and more people get involved and inspired by your story. A college class? Where and what? That could be the start of an interesting new career path. Best wishes and let us inow all about your experience. X