"Bring patients together to give them a bigger voice together than they could ever have on their own."
Titta Anttila, Finland
Executive board of the LGD Alliance Europe
"We didn't know other patients with Gorham's or Lymphangiomatosis. Contact with other patients and doctors, all around Europe gives us a chance to compare possible treatments and therapies."
Lucia Nannetti, Italy
Mother of a patient
"My research on lab grown meet and that on rare lymphatic malformations benefits hugely from each other. Our combined efforts will have positive effects for all our children and grand-children."
Mark Post, the Netherlands
Ambassador for the LGD Alliance Europe
"We work hard on scientific research on Lymphangiomatosis and Gorham's Disease. It may even benefit thousands of people with related vascular malformations."
Doctor Jochen Rössler, Germany
Medical advisor for the LGD Alliance Europe

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Partners

The LGD Alliance Europe is member of Eurordis and cooperates with the LGD Alliance in the United States of America.

In the United Kingdom, the Netherlands and Belgium are national member organizations of the LGD Alliance Europe. More information can be found on this website, in the specific languages of these countries.