enhancing the lives of patients with cystic fibrosis..... www.reachingoutfoundation.org

Susan's Transplant Video is on You Tube

Susan Burroughs, the Founder of Cystic Fibrosis-Reaching Out Foundation has now put her transplant video on You Tube. To see the video please go to http://www.youtube.com/ and search "Susan Burroughs".

Tuesday, October 7, 2008

CF Patient News

Dear Reaching Out Foundation (Susan),

Once again we wanted to thank you so much for your help. I was not expecting to get so much help from that email. Even a little would have been appreciated. Because of what you have done for us, we were able to pay our bills for the month, and pay the September payment. We are now back on track with our house payment. We used the extra for past due bills that we had been staying one step in front of. We accepted the help with so much gratitude and thankfulness for your foundation. We always realize we are taking help that could have went to other places where it was just as badly needed. No family could thank you more and thank God for your being there for us.

Both Chelsi and Rocki have had exacerbations the past two weeks complicated with bronchitis and asthma, so we have had a sleepless two weeks. They are both feeling better now and I am praying that it does not turn and come back around. I hope your family is doing well and none of this has touched them ....and especially you.

Every single day we think of you Susan and the trials you are going through. We are praying that the treatments go well and, if not easier, get more comfortable for you as time goes by. Be safe in your journey for treatments, those drives are long and tiring, and I could not believe you drove yourself. It takes us 2 1/2 hours to get to Atlanta. Remember if you ever need someone to help, I am available. Our hearts and minds are with you daily. We will keep reading your web page for updates. God Bless You.

I am sending pictures of the girls. Rocki was able to be in the Jr. Miss pageant at the school and placed in the finals. It was a scholastic pageant so I was very proud of her. She did not feel well at the time, but she did a good job. The other girls had spent hundreds of dollars on their dresses and hair, but Rocki wore a borrowed dress and I did her hair.....................and she still placed in the finals. It was her first pageant and I don't think she is eager to do that again. Chelsi is doing well in school. This illness was a little setback, but her disability coordinator, Ms. Swindle, is very good about helping her keep track of her work while she is out.

Cystic fibrosis has certainly taught me one thing clearly, that life is a constant circus and we are the jugglers, always trying to keep so many things in the air at once.

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The Cystic Fibrosis-Reaching Out Foundation Inc. is a 501c3 non-profit organization dedicated to helping families with with cystic fibrosis in times of crisis. We work directly with the social workers at qualified cystic fibrosis centers who are familiar with the unique medical and social needs of the families affected by cystic fibrosis. We are an all volunteer organization and rely on donations for our funding.

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About Cystic Fibrosis-Reaching Out Foundation Inc.

Cystic Fibrosis-Reaching Out Foundation, Inc. is a non-profit organization dedicated to providing assistance to patients and families with Cystic Fibrosis. The Reaching Out Foundation, Inc. is operated solely through volunteer support. Great effort is made to ensure that every penny of your donation works to assist patients and families in need. The Reaching Out Foundation, Inc. is committed to improving the well being of cystic fibrosis patients and their families by providing financial services and education that fortify family structures. While celebrating advances in longevity brought about by CF Research, the Foundation recognizes the challenge of enabling CF individuals and families to plan for their own present and future needs. Therefore, the Foundation relies on affiliated social workers to administer income support to eligible parties and to refer families where the need exists to qualified financial planners in non-profit agencies. Since we were founded in 1998 over $800,000 went to the Programs of the Reaching Out Foundation, Inc. The Foundation’s goal is to maintain cost of services at 80% of expenses or higher. Currently, our % is 84% The Foundation does not pay salaries, rent or utilities.