Agree, rixsk acknowledge that there aren't any real authorities when it comes to PSSD because we know too little yet they use their perceived authority to create a really bleak picture of our prospects.

PSSD Since March 2016 after 4 weeks on SertralineConditioned worsened and peaked in April, since then possibly seen a 20% improvementWould be useful for data collection if people could add their histories in their signature

Title is poorly named, which is a shame because Healy has a few moments of good writing in there.

"What AIDS activists showed all of us is that if those affected hang together, if they organize, they can force the establishment to change tack. They also took things into their own hands rather than sat back and waited for experts to come up with answers"

"people without a medical degree are at least as well placed to offer answers to this mystery as those with one"

but then he begins on the path that I disagree with vehemently. I can't deny him legitimacy in his opinion, but I strongly disagree with:

"It seems highly likely to me that the problems in PSSD and withdrawal are in our bodies not our brains."

and this comment

"There is vastly more of us in our bodies than we recognize at present and less in our brains than we are inclined to think. It might be more productive to regard the brain (at least the male brain) is a glorified relay station rather than the spot where all the key action takes place."

But, I have been raised in an era that praises the brain, and at a time in neuroscience where we look there for all answers, so I am biased. Healy is not a neurologist, nor a neuroscientist, but a psychiatrist. He and I differ in training.

Overview: It's 5-10 minutes of your time that you can't get back. Individually, it offers a few good insights, but overall it offers very little, and the title makes absolutely no sense while being unfounded by any evidence other than a slew of people Healy has emailed over the past decade.

On one hand, it's great he cares to publish anything on PSSD at all. He could not care at all. I also understand hes writing based on his own experiences and biases. Having said that, with the lack of evidence on pretty much the entirety of pssd, I would be cautious to present these articles like fact and ignore other possibilities. The way these articles are written are very bleak. It woukd be one thing to back up the bleakness with evidence.

I'm really scared now. I found out today someone I used to know pretty well has died at 31. The thought of living like this until and at 31 years of age terrifies me. But I think Dr healy is right. I will at least get these evil monsters to admit what they did to me, no matter how difficult that is.

Juvo wrote:On one hand, it's great he cares to publish anything on PSSD at all. He could not care at all. I also understand hes writing based on his own experiences and biases. Having said that, with the lack of evidence on pretty much the entirety of pssd, I would be cautious to present these articles like fact and ignore other possibilities. The way these articles are written are very bleak. It woukd be one thing to back up the bleakness with evidence.

OK but there's no evidence that it's neurological either and this forum still operates entirely on that unfounded assumption. If it is physical - what tests do we need from urologists and is there any chance at all of treatment or recovery? These are questions we need to ask ourselves.