About Us

Children’s Hospital Los Angeles is a non-profit, freestanding children’s hospital with a reputation as an international leader in providing state-of-the-art medical care for children.

Children Hospital Los Angeles, acknowledged for its leadership in pediatric and adolescent health, has evolved into one of the world’s finest pediatric academic medical centers, due in large part to its association with the Keck School of Medicine of the University of Southern California.

The American Nurses Credentialing Center has accorded our hospital with Magnet Recognition. Magnet status is used as a national benchmark of the quality of care provided by a hospital's nursing force. Our hospital is one of eight children's hospitals nationally to be designated a "Top Hospital" for 2009 by The Leapfrog Group.

General Nephrology

Our physicians see patients with a wide range of general nephrologic problems referred by community physicians. We make every effort to see patients quickly (within 24-48 hours, when needed).

Dialysis

In 1967, we became one of the first groups in the nation to provide comprehensive dialysis services to children. At any given time, we care for approximately 50-60 patients who are undergoing chronic dialysis. Improvements in dialysis technology and clinical expertise enable even the smallest of children, including newborns, to receive safe, effective dialysis. Peritoneal dialysis is preferentially used to treat young, small patients, since families can be trained to handle this procedure at home.

Emory-Children's Center (ECC), a not-for-profit organization and a joint venture between Emory Healthcare and Children's Healthcare of Atlanta, is one of the largest pediatric multispecialty group practices in Georgia. The center includes more than 200 Emory University School of Medicine faculty working in more than 20 specialties and subspecialties that are actively involved with pediatric clinical care, teaching, research and child advocacy efforts in Georgia and throughout the Southeast.

About Us

The University of Michigan, Divisions of Internal Medicine Nephrology and Pediatric Nephrology are internationally recognized for the excellence of clinical care, and its rich and diverse education and research programs. Faculty in the divisions practice and teach optimal care for patients with a broad spectrum of kidney diseases at all stages. In addition, faculty members are actively involved in high-quality basic science, outcomes and clinical research aimed at better treatment as well as prevention of kidney-related health issues.

The University of Michigan is a unique environment for healthcare and scientific discovery on behalf of individuals with nephrotic syndrome. Available services include:

Nephrotic syndrome research program including the lead for the national Nephrotic Syndrome Study Network (NEPTUNE), basic science research of the molecular mechanism s of nephrotic syndrome, genetic causes of nephrotic syndrome, clinical trials for the evaluation of therapies for nephrotic syndrome and FSGS management and patient outcome research.

The University of Michigan is excited to collaborate with investigators from other internationally recognized clinical centers in order to better understand nephrotic syndrome.

The Mayo Clinic Division of Nephrology was established in 1963. The combined Division of Nephrology and Hypertension is now comprised of 39 faculty members and is one of the world’s largest groups dedicated to the study of the kidney, hypertension, and the treatment of patients with renal diseases and hypertension. The Mayo Clinic Division of Nephrology and Hypertension was ranked first nationally in the 2010, 2011, 2013, 2014, and 2015 US News and World Reports surveys, and a close second in 2012.

The Mayo Nephrology Collaborative Group (MNCG) is a consortium of nephrologists including Mayo Clinic Rochester, Jacksonville, and Scottsdale, and clinical and academic nephrologists located across the United States interested in developing and conducting prospective studies aimed at treating patients with renal parenchymal diseases. Established in 1988 by Dr. James V. Donadio Jr. and collaborators, the consortium has grown to now encompass 30 clinical centers and involves the participation of over 100 physicians and coordinators who are seeing the vast majority of patients with parenchymal renal diseases early in the course of illness, at a time when promising new therapies may exert their greatest influence.

The members of the MNCG believe strongly that clinical research goes hand in hand with our roles as clinicians and educators, and that this research is crucial for developing new therapies for patients with renal parenchymal diseases and have more than 10 clinical studies and disease registries. MNCG members are instrumental in design and leading of clinical trials in glomerular disease and other renal diseases and participate in several NIH sponsored multicenter collaborative initiatives in glomerular disease, other renal diseases and translation of new diagnostic and prognostic tests into clinical practice. In addition, the work of the MNCG leads to the rapid diffusion of new discoveries because of the number of practices it affects. Both from the intra- and extramural point of view, the role of the clinical research conducted by the MNCG, has contributed to better patient care, and has served an educator to the nephrology community worldwide through its publications.

About Us

A truly unique facility, Cohen Children's Medical Center is dedicated exclusively to the care of children and committed to providing the most sophisticated, state-of-the-art care in all major clinical areas. Family centered care is the core of our mission. Our discoveries, advancements and achievements over the years have earned us recognition and nationally-ranked as one the nation's preeminent children’s hospitals.

About Us

CWRU Center for the Study of Kidney Disease and Biology

The mission of the CWRU Kidney Disease Research Center is to accelerate discovery and its translation for treatment and cure of kidney disease. The faculty is an accomplished and highly interactive group of physicians and M.D. & Ph.D. investigators in the adult or pediatric Divisions of Nephrology or Pediatric Nephrology in CWRU-affiliated hospitals and 17 other clinical and basic scientists in other Departments of the CWRU School of Medicine, all of whom actively study kidney biology and disease. Research interests of the faculty include glomerular development and disease, epithelial cell biology and ion transport, cystic kidney disease, genetic epidemiology, health services research and clinical trials. The clinical faculty include nationally recognized experts on nephrotic syndrome and related kidney diseases. The Center participates in clinical trials of new therapies for glomerular diseases.

About Us

The Toronto Glomerulonephritis Registry has provided the international nephrology community with important insights into the natural history of glomerulonephritis and the nephrotic syndrome. Our centre has designed and conducted seminal clinical trials of emerging treatments for glomerular-based kidney diseases. Our multi-disciplinary team includes highly specialized clinicians dedicated to treating patients with glomerulonephritis, as well as clinician-researchers focusing on epidemiologic outcomes and translational research in glomerulonephritis. In addition, our centre is dedicated to training new nephrologists and researchers from around the world.

Involvement in the Neptune study is a natural extension of our long-standing efforts to improve the understanding and treatment of patients with glomerulonephritis. Neptune is closely integrated into our ongoing studies of clinical, pathologic, and molecular predictors of progressive glomerular based kidney disease. We view Neptune as a unique and long-awaited opportunity to collaborate with centers across North America with mutual interest to ours and to share knowledge about the nephrotic syndrome and provide a platform for patients to access the latest diagnostic and treatment opportunities.

About Us

The Nephrology Division at the University of Texas Southwestern (UTSW) Medical Center offers a wide breath of clinical experience in the evaluation and management of kidney disease. Such broad experience is provided in the context of our major teaching hospitals: Dallas County Parkland Hospital, University Hospitals Clement’s and Zale Lipshy, Children’s Medical Center, and the Veteran Affairs North Texas Health Care System. In addition to our commitment to clinical care, the UTSW Nephrology Division conducts cutting-edge basic science and patient-oriented research. The overall goal of our research program is the acquisition of new knowledge that will advance our understanding of kidney biology and the pathogenesis and treatment of renal disease.

About Us

The University of Washington Medical Center, Seattle Children’s Hospital, and Providence Sacred Heart Medical Center & Children’s Hospital are internationally recognized for cutting-edge research and excellence of care for adult and pediatric patients with renal diseases. Our team of investigators in the United States Pacific Northwest join efforts in NEPTUNE to better understand, prevent, and treat nephrotic renal diseases.

University of Michigan

Ann Arbor, MI

Study Title:

Multicenter International Durability and Safety of Sirolimus in LAM Trial