A statement to Newsbeat from some of the country's leading ME researchers and clinicians* says: "These therapies help many people with CFS/ME by reducing symptoms, increasing what they can do, and improving their quality of life."

It goes on to say that using GET "is based on good evidence from multiple studies and randomised controlled trials showing that these treatments are safe and useful for some patients.

"Right now there are no alternatives for patients, so it is vital that they are not deterred from accessing therapies that can help them."

The Department of Health also admits CFS/ME is "poorly understood" and says "over the past six years we have invested £3.35 million in research to improve understanding of the condition and to look at new approaches to treatment".