To coordinate actions and initiatives to develop health activities and actions to support policy on Rare Diseases.

Task:

Assist the Commission in the preparation of legislative proposals and policy initiatives

Coordinate with Member States, exchange of views

Contact:

SANTE-EXPERT-GROUP-RARE-DISEASES@ec.europa.eu

Publication in RegExp:

07 Feb 2014

Creating Act:

COMMISSION DECISION of 30 July 2013 setting up a Commission expert group on rare diseases and repealing Decision 2009/872/EC, (2013/C 219/04) DECISION of 7 January 2014 on the appointment of the members and their representatives to the Commission expert group on rare diseases set up by Decision (2013/C 219/04)