October 2010

Namine came home from the hospital today. Much has happened, most of which I’ve already talked about – her stoma closure, her foot surgery, and the upcoming re-casting. And now we’ve got even more: g-tube removal!

I was our understanding that Namine would have her casts replaced – it’s not accurate to call them surgeries anymore – every Monday. This past week, the appointment was at 1:00, so we figured it would be every Monday at 1:00. We also figured that ortho would follow up with us, as they said they would, prior to Friday (today). We should have known better.

Jessica and I were in the other room, preparing our joint Halloween effort for tomorrow. (Don’t worry, I’ll post some pictures tomorrow. You’ve been warned.) Namine was in the living room, playing contentedly. In the corner of the living room, on the lowest shelf on one of the bookshelves, we keep a couple boxes of toys, some coloring books, and a bag of pens, pencils, and crayons. Namine ventured into her corner by herself (dragging those pink casts like so much dead weight, what a trooper) to play, so we left her to her own devices, checking on her periodically. Then she discovered a box of Band-Aids that I must have forgotten on the floor.

Namine was coughing quite a bit after she woke up, so we took her to the doctor this morning. Two nights ago, she was coughing a bit before she fell into a deeper sleep. Last night, however, she didn’t cough at all. I had hoped that whatever had been giving her the sniffles had passed. Apparently, that is not the case.

The other day, I came home from work with a migraine. Namine was playing nicely on the floor, and Jessica was relaxing on the couch. After giving my two loves hugs and kisses, I hung up my jacket and laid down on the floor next to Namine.

I was reading something earlier – you can see it here – about how parents with special needs children can hold back their kids’ education/development/what-have-you. One of the majors ways this happens is when the parents focus more on the disability than on the child.

I’m going to try to keep this short, because I’m typing this from my phone. Anyway, Namine’s foot surgery is done, and seems to have gone well. I don’t actually know what all was done, because I haven’t had the chance to speak with any ortho docs. Both of Namine’s feet (especially the left) appear to be a little straighter, though.

Namine is making progress. She is still in pain, but seems to be dealing with it a little better. That, and we have a better idea of when the meds start to wear off, and we can sort of anticipate when she’ll need her next dose. Namine is starting to learn to move around again.

Namine came home from the hospital today. Much has happened, most of which I’ve already talked about – her stoma closure, her foot surgery, and the upcoming re-casting. And now we’ve got even more: g-tube removal!