Medicine and Health > Bioethics

Cochlear Implants in Children: Ethics and Choices addresses every facet of the ongoing controversy about implanting cochlear hearing devices in children as young as 12 months old and in some cases, younger. Authors John B. Christiansen and Irene W. Leigh and contributors Jay Lucker and Patricia Elizabeth Spencer analyzed the sensitive issues connected with the procedure by reviewing 439 responses to a survey of parents with children who have cochlear implants. They followed up with interviews of the parents of children who have had a year's experience using their implants, and also the children themselves. Their findings shape the core of this useful and telling study.
Cochlear Implants begins with a history of their development and an explanation of how implants convert sound into electric impulses that stimulate the brain. The second section focuses on pediatric implants, starting with the ways parents coped with the discovery that their child was deaf. Parents share how they learned about cochlear implants and how they chose an implant center. They also detail their children's experiences with the implants after surgery, and their progress with language acquisition and in school.
The final part treats the controversy associated with cochlear implants, particularly the reaction of the Deaf community and the ethics of implanting young children without their consent. Cochlear Implants concludes with sage observations and recommendations for parents and professionals that complete it as the essential book on the pros and cons of this burgeoning technology.

Controversial, fascinating, disturbing, and often beautiful, plastinated human bodies—such as those found at Body Worlds exhibitions throughout the world—have gripped the public's imagination. These displays have been lauded as educational, sparked protests, and drawn millions of visitors. This book looks at the powerful sway these corpses hold over their living audiences everywhere.
Plastination was invented in the 1970s by German anatomist Gunther von Hagens. The process transforms living tissues into moldable plastic that can then be hardened into a permanent shape. Von Hagens first exhibited his expertly dissected, artfully posed plastinated bodies in Japan in 1995. Since then, his shows have continuously attracted so many paying customers that they have inspired imitators, brought accusations of unethical or even illegal behavior, and ignited vigorous debates among scientists, educators, religious leaders, and law enforcement officials.
These lively, thought-provoking, and sometimes personal essays reflect on such public displays from ethical, legal, cultural, religious, pedagogical, and aesthetic perspectives. They examine what lies behind the exhibitions' popularity and explore the ramifications of turning corpses into a spectacle of amusement. Contributions from bioethicists, historians, physicians, anatomists, theologians, and novelists dig deeply into issues that compel, upset, and unsettle us all.

The trial of the "German doctors" exposed atrocities of Nazi
medical science and led to the Nuremberg Code governing human experimentation. In
Japan, Unit 731 carried out hideous experiments on captured Chinese and downed
American pilots. In the United States, stories linger of biological experimentation
during the Korean War. This collection of essays looks at the dark medical research
conducted during and after World War II. Contributors describe this research, how it
was brought to light, and the rationalizations of those who perpetrated and
benefited from it.

Jesica Santillan, the Bungled Transplant, and Paradoxes of Medical Citizenship

Edited by Keith Wailoo, Julie Livingston, and Peter Guarnaccia

In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight--she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's tragedy became a portal into the complexities of American medicine, prompting contentious debate about new patterns and old problems in immigration, the hidden epidemic of medical error, the lines separating transplant "haves" from "have-nots," the right to sue, and the challenges posed by "foreigners" crossing borders for medical care.This volume draws together experts in history, sociology, medical ethics, communication and immigration studies, transplant surgery, anthropology, and health law to understand the dramatic events, the major players, and the core issues at stake. Contributors view the Santillan story as a morality tale: about the conflicting values underpinning American health care; about the politics of transplant medicine; about how a nation debates deservedness, justice, and second chances; and about the global dilemmas of medical tourism and citizenship.Contributors:Charles Bosk, University of PennsylvaniaLeo R. Chavez, University of California, IrvineRichard Cook, University of ChicagoThomas Diflo, New York University Medical CenterJason Eberl, Indiana University@-Purdue University IndianapolisJed Adam Gross, Yale University Jacklyn Habib, American Association of Retired PersonsTyler R. Harrison, Purdue UniversityBeatrix Hoffman, Northern Illinois UniversityNancy M. P. King, University of North Carolina at Chapel HillBarron Lerner, Columbia University Mailman School of Public HealthSusan E. Lederer, Yale UniversityJulie Livingston, Rutgers UniversityEric M. Meslin, Indiana University School of Medicine and Indiana University@-Purdue University IndianapolisSusan E. Morgan, Purdue UniversityNancy Scheper-Hughes, University of California, BerkeleyRosamond Rhodes, Mount Sinai School of Medicine and The Graduate Center, City University of New YorkCarolyn Rouse, Princeton UniversityKaren Salmon, New England School of LawLesley Sharp, Barnard and Columbia University Mailman School of Public HealthLisa Volk Chewning, Rutgers UniversityKeith Wailoo, Rutgers UniversityThis collection of essays provides a multidisciplinary conversation about Jesica Santillan, the undocumented immigrant teen who died after receiving a heart transplant of the wrong blood type. Contributors from the fields of history, sociology, surgery, ethics, anthropology, media, and law offer differing perspectives on common themes that give a cohesive structure to the collection. In sixteen essays, they discuss the promise and problems of high-tech medicine, tort reform and malpractice suits, distribution of scarce resources, personal and systemic errors in health care, and the impact of highly publicized media dramas. Without placing blame, the essayists seek to understand the events and issues as played out in key locales and practices: in hospitals wary of committing errors, in transplant procedures concerned with timely delivery of organs, in print and broadcast media bent on satisfying public interest in stories of life-saving medicine or medical scandal, and in the global turn toward medical tourism.In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight--she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's tragedy became a portal into the complexities of American medicine, prompting contentious debate about new patterns and old problems in immigration, the hidden epidemic of medical error, the lines separating transplant "haves" from "have-nots," the right to sue, and the challenges posed by "foreigners" crossing borders for medical care. This volume draws together experts in history, sociology, medical ethics, communication and immigration studies, transplant surgery, anthropology, and health law to understand the dramatic events, the major players, and the core issues at stake.In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight--she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's tragedy became a portal into the complexities of American medicine, prompting contentious debate about new patterns and old problems in immigration, the hidden epidemic of medical error, the lines separating transplant "haves" from "have-nots," the right to sue, and the challenges posed by "foreigners" crossing borders for medical care.This volume draws together experts in history, sociology, medical ethics, communication and immigration studies, transplant surgery, anthropology, and health law to understand the dramatic events, the major players, and the core issues at stake. Contributors view the Santillan story as a morality tale: about the conflicting values underpinning American health care; about the politics of transplant medicine; about how a nation debates deservedness, justice, and second chances; and about the global dilemmas of medical tourism and citizenship.Contributors:Charles Bosk, University of PennsylvaniaLeo R. Chavez, University of California, IrvineRichard Cook, University of ChicagoThomas Diflo, New York University Medical CenterJason Eberl, Indiana University–Purdue University IndianapolisJed Adam Gross, Yale University Jacklyn Habib, American Association of Retired PersonsTyler R. Harrison, Purdue UniversityBeatrix Hoffman, Northern Illinois UniversityNancy M. P. King, University of North Carolina at Chapel HillBarron Lerner, Columbia University Mailman School of Public HealthSusan E. Lederer, Yale UniversityJulie Livingston, Rutgers UniversityEric M. Meslin, Indiana University School of Medicine and Indiana University–Purdue University IndianapolisSusan E. Morgan, Purdue UniversityNancy Scheper-Hughes, University of California, BerkeleyRosamond Rhodes, Mount Sinai School of Medicine and The Graduate Center, City University of New YorkCarolyn Rouse, Princeton UniversityKaren Salmon, New England School of LawLesley Sharp, Barnard and Columbia University Mailman School of Public HealthLisa Volk Chewning, Rutgers UniversityKeith Wailoo, Rutgers University

Creating Life, Destroying Life, and Protecting the Rights of Conscience

Christopher Kaczor

Questions about the dignity of the human person give rise to many of the most central and hotly disputed topics in bioethics. In A Defense of Dignity: Creating Life, Destroying Life, and Protecting the Rights of Conscience, Christopher Kaczor investigates whether each human being has intrinsic dignity and whether the very concept of "dignity" has a useful place in contemporary ethical debates. Kaczor explores a broad range of issues addressed in contemporary bioethics, including whether there is a duty of "procreative beneficence," the ethics of ectopic pregnancy, and the possibility of "rescuing" human embryos with human wombs or artificial wombs. A Defense of Dignity also treats issues relevant to the end of life, including physician-assisted suicide, provision of food and water to patients in a persistent vegetative state, and how to proceed with organ donation following death. Finally, what are the duties and prerogatives of health care professionals who refuse in conscience to take part in activities that they regard as degrading to human dignity? Should they be forced to do what they consider to be violations of the patient's well being, or does patient autonomy always trump the conscience of a health care professional? Grounded in the Catholic intellectual and moral tradition, A Defense of Dignity argues that all human beings from the beginning to the end of their lives should be treated with respect and considers how this belief should be applied in controversial cases.

The Human Genome Project, discoveries in molecular biology, and new reproductive technologies have advanced our understanding of how genetic science may be used to treat persons with genetic disorders. Greater knowledge may also make possible genetic interventions to "enhance" normal human characteristics, such as height, hair or eye color, strength, or memory, as well as the transmittal of such modifications to future generations. The prospect of inheritable genetic modifications, or IGMs, whether for therapeutic or enhancement purposes, raises complex scientific, ethical, and regulatory issues.
Designing Our Descendants presents twenty essays by physicians, scientists, philosophers, theologians, lawyers, and policy analysts addressing these issues from diverse perspectives. In three sections, the authors discuss the short- and long-term scientific feasibility of IGM technology; ethical and religious issues related to safety, justice, morality, reproductive rights, and enhancement; and regulatory issues including the necessity of public input and oversight and the influence of commercialization. Their goal is to open a dialogue engaging not only scholars and scientists but also government officials and concerned citizens. The authors conclude that while IGM cannot be carried out safely and responsibly on humans utilizing current methods, it is important to begin public discussion now to determine whether, and if so how, to proceed.

This study analyzes both pragmatic and theoretical perspectives of ethical deliberation, as well as the professional and philosophical backgrounds for the ethical deliberation of social workers, nurses and doctors working in the field of chronic illness. In doing so, this volume expands the scope of current research through an analysis of the process and its dynamics.

University researchers in the United States seeking to observe, survey, or interview people are required first to complete ethical training courses and to submit their proposals to an institutional review board (IRB). Under current rules, IRBs have the power to deny funding, degrees, or promotion if their recommended modifications to scholars’ proposals are not followed. This volume explains how this system of regulation arose and discusses its chilling effects on research in the social sciences and humanities.
Zachary M. Schrag draws on original research and interviews with the key shapers of the institutional review board regime to raise important points about the effect of the IRB process on scholarship. He explores the origins and the application of these regulations and analyzes how the rules—initially crafted to protect the health and privacy of the human subjects of medical experiments—can limit even casual scholarly interactions such as a humanist interviewing a poet about his or her writing. In assessing the issue, Schrag argues that biomedical researchers and bioethicists repeatedly excluded social scientists from rule making and ignored the existing ethical traditions in nonmedical fields. Ultimately, he contends, IRBs not only threaten to polarize medical and social scientists, they also create an atmosphere wherein certain types of academics can impede and even silence others.
The first work to document the troubled emergence of today's system of regulating scholarly research, Ethical Imperialism illuminates the problems caused by simple, universal rule making in academic and professional research. This short, smart analysis will engage scholars across academia.

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