Queen of the Distracted

Imagine life in a house with 6 kids - now imagine if 5 of those kids and their father have ADD/ADHD (Attention Deficit Hyperactivity Disorder) - that is our house! Welcome to an inside view of my life and our home dominated by ADHD... THERE IS NEVER A DULL MOMENT!

Ladies and Gentlemen! Boys and Girls!

"Ladies and Gentlemen, Boys and Girls!"

Those were our oldest daughter Rachel's first words, from the time she was a toddler she would belt them out proudly standing on the arm of the couch. At the time we had no idea what ADHD was or that it would play such a central roll in our lives.

Since then we have learned a lot, not the least of which is how many individuals and families suffer in silence. We have experienced first hand how misunderstood and misrepresented a disorder can be.

As a family we decided to take action - to risk embarrassment and labeling to get this important message out to the world. Come join our family, share in our lives, and see ADD/ADHD as we see it...A gift with a heavy price tag.

WELCOME to life in the ADD/ADHD House!

Sunday, September 15, 2013

Finding Patience in the ADHD House - Just Keep Swimming

My husband, the Distracted King, thought I should entitle this post Just Keep Swimming, after Dory in
Finding Nemo. At first I wasn't sure about that, though, the more I thought about the patience it takes to raise a house full of ADHDers I did think I can completely relate to Dory. Sometimes, most times, life in my house is overwhelming and the answer really is, "just keep swimming."

I was recently asked how I have the patience to deal with so many ADHDers under one roof. The answer is complicated. It was certainly too complicated for the 140 characters at a time that twitter provides. The answer is, I am not always patient, ask my husband and kids. They will
certainly attest to it, but, I am mostly patient because I have learned the value of it. How did I learn, by being impatient and figuring out it made things worse for both them and me. I look at the goal of parenting as a very long term far reaching goal.

I want my kids to be healthy, to love who they are and embrace it, to be good-hearted people who want to make a positive change in the world. I want them to have to skills to do that. I don't want to crush who they are, their spirit, I want to empower them to live up to their strengths and conquer their weaknesses. Conquering doesn't mean getting rid of, by the way, I believe it means learning to work with, around, over whatever it takes to deal with them so that their weaknesses don't keep them from using their strengths. Yes, do I want to them to learn social skills, maybe not so many that they completely repress everything that pops into their mind to say or do, but enough to be able to choose when to filter their thoughts and actions to best serve the needs of the situation.

I believe that the daily goal of parenting should be to keep the end goal in mind - do what will help them not just today but down the road. Keeping the goal in mind is what changed the way I parent day to day. So, these are the things that I try to keep in mind day to day to make that work.

Unconditional Love

People define love in so many ways but when I parent I have to start with unconditional love - I love regardless. Regardless of inabilities, weaknesses, frailties. I love when they are successful and when they are not. I love them just as much when they make us proud as when they embarrass us.And most importantly I make sure that THEY know that I love them regardless. That I love them, love them absolutely, completely separate and independent of their actions.

Accept your child for where they are at now, today.
It is easy to get caught up in what we think that our kids should be able to do at certain ages. Our expectation of where they should be can't and shouldn't cloud our acceptance and acknowledgement of where they are now. To help our children make progress in any area of life I have found I have to know and accept where they really are right now. Being honest with where that is changes perspective and makes progress really possible.

For example, our daughter with dyslexia, dysgraphia, dyspraxia, and ADHD got advanced on her state testing this last year in English/Language Arts. A far cry from when she was in the 5th grade reading at a first/second grade level. Her progress started when we were able to be honest about where she really was, then we could help her. She still has all the same disorders but she has learned, is still learning, how to overcome them. It goes the same for any habit, any social skill, any weakness. Be honest and accept where they are today so that you can work on changing tomorrow.

Redefine normal as normal for us

This goes hand in hand with being honest about where things really are. Abandon "normal" and embrace who they are. It is easy to get caught up in what society says is normal and expect that for our own lives. What follows are feeling of frustration and failure because we aren't experiencing "normal."

Here is our normal. It is normal for us to take at least 2 hours to get ready to leave the house to go somewhere. It is normal for us to get over stimulated in crowds and need a break. It is normal for our house to be driven by creativity which spills out in everything we do and are. It is normal for us to get easily frustrated and meltdown. It is normal for us to be on or off, completely engaged and passionate or totally uninterested. It is normal for us to forget, even seconds after being reminded. It is normal for change, even the slightest change, even a good change to rock the world and make it momentarily unmanageable. It is normal for us to be captured by an idea and need to record it so we don't lose its brilliance forever. It is normal to be distracted by anything and everything that is more appealing to think about or do. It is normal for the impulse to act to be way stronger than the impulse to think about the consequences of that action.

My advice, find and respect each individual's normals. We have redefined normal to suit what normal is for us as individuals and our family.

Accepting what normal is for us had not meant that we just excuse away bad behavior. What it means is teaching our kids how to act appropriately in different situations. It means that we can acknowledge our own normal and set it aside when the circumstances demand.

Adjust your expectation

Once we accept where our child is, we have accepted our new normal, then we start adjusting our expectations. I start with the reality of where they are at. If it takes several hours for them to get ready in the morning I am not going to get that down to 10 minutes over night. I can, and have, slowly adjusted behavior. So maybe now the same child can work the coping mechanisms we have put in place together and get ready in an hour not three. If you start every days homework thinking this should only take a half an hour and 3 hours later you are still doing homework you are going to be frustrated and mad all the time. If you start saying this is going to take 3 hours and it only takes two you are going to be happy and excited. There are inherent traits of ADHD, ASD, learning disabilities, anxiety, SPD, depression, that will quite frankly be long arduous battles to gain the coping skills that will last and be used the rest of your child's life.

Pick your battles

Some things aren't as important as we think they are
- we all have standards that need to be kept and reenforced but there
are a lot of things that we can compromise on and work out to the
benefit of ourselves and our kids. Home shouldn't be a minefield of
expectations. Home should be a place to learn, understand, grow, and explore. It should be a place where you feel safe and understood. A place where it is okay to make mistakes, a place where we are given the opportunity to learn from them. As parents we have had to pick our battles keeping the long range goals in mind. If we take up every battle and nit pick the little things we will lose both the battle and the war.

Respect the way their brain works and create coping mechanism to meet your needs and theirs

writing homework in planner - not enough

I truly believe one of the greatest thing we can do for our children is figure out what their experience is, understand it, empathize with it, learn about it. Then help them learn to recognize and understand their experience so that they can communicate with you and others what that is. When we figure that out that we can begin to develop coping mechanisms, tricks, reminders, stopgaps that help manage the long list of traits and struggles that they are having. They will need those coping mechanisms and use them all their lives. The trick is they have to work for them, with them and their personality. It's easy as a parent to try and fix something by throwing what would work for us at our kids. Sometimes that may work but when it doesn't we need to look to our kids to voice possible solutions. Any system that we create as a coping mechanism is more effective with their buy in. It also trains them to problem solve for themselves, to recognize when they are struggling with something and seek effective solutions (long range parenting mixed with the here and now). Ultimately, it has to work for them, they have to use it, and we want them to be able to use it on their own when we aren't there to make it happen.

This is a long process of hits and misses. I have to remind myself to be patient as we always seem to figure out more systems that don't work than systems that do.

Discipline with learning in mind

In our home, sometimes, in fact I would say most of the time, our discipline doesn't look like discipline at all. It looks like teaching and learning. That is on purpose. We learned long ago that traditional method of discipline don't work at all. I remember more than one frustrating conversation after another (before I understood this principle) where I would lay out a punishment, "no TV." Countered by, "well, that's okay I have been meaning to watch less TV." I would add to the punishment no this, no that. Countered by mental adjustments making whatever punishment was given a good thing. Frustrating at best.

Then at some point I realized my goal was not, should not be to to punish. The goal, the thing I wanted was for them to learn. A long time ago our punishments changed. We don't do timeouts for set times, they are dependent on the kid and how long it takes them to pull things back under control. We use them as a reset button. As soon as they are calm and ready to talk and listen then we are done with punishment and ready to learn. Learning is the goal. We talk about why something was wrong, how to handle a situation differently, what to do, how to communicate. Whatever the situation requires so that next time we can achieve a different outcome.

Accept progress as progress even if it's a tiny bit - celebrate it!
Progress can be so slow that sometimes it doesn't feel like we're making it at all. Be watchful for progress, find it where ever you can and point it out, celebrate it.Especially when you are in the middle of disciplining and teaching because something went wrong find the ways in which your child has improved and point those out. Eventually you will look around and realize you are much farther up the mountain than you realized. They will see it too. One of that hardest battles our kids face is self esteem. The sense that they are less than others because of their struggles is evident to them all the time, even when no one is specifically pointing it out. It often leaves them feeling like they are broken. Who can effect change in their life when they feel broken? I don't believe anyone can. We need our kids to feel empowered, to know that they are brilliant, and that whatever problem that lies in front of them is not bigger than their ability to meet it head on and conquer it.

Encourage your child to engage in what they are passionate about in a healthy way

Pursuing the things that they are passionate about, sports, music, art, drama, science, literature, whatever it is, creates balance in our children and that translates into balance in our lives and home. It is important enough that despite pressing schedules we carve out time for them to engage in whatever their passion is. It feeds them the best things in life, confidence, creativity, empowerment, teaches them to set goals, to endure hardship and opposition, conquer failure and in the end find success. It gives them joy. It gives me joy as I watch them.

Enjoy your children

Don't allow yourself to be so tired or worn out by the day to day battle that you can't enjoy your children. Find ways to stop and enjoy the wonderful spark that makes them an individual. Laugh with them, celebrate them. Approach life with a healthy dose of humor. Our sense of humor is a lifeline. It is an anchor in our home and often the vehicle by which we use to teach most effectively.

In fact, as my husband is quick to point out there is nothing like humor in its ability to turn around a tense situation or meltdown.

We have a motto: Aro family making simple things hard. And when we have really made life more difficult than it has to be we drag out the motto and laugh at ourselves. We enjoy our impulsiveness, our creativity, our whims, our diversions. We laugh together, sing together, get frustrated together, make up parody lyrics together. Those are our things, your things will be specific to your family, maybe its have Nerf wars together or playing sports together, whatever it is do it and have fun doing it.

Make time to take care of yourself

Admittedly I am horrible at this, so my advice would have to be either do what I say not what I do or enlist friends and family to make you stop and get some time to yourself to retreat and regroup. I have great family and friends who drag me out of it all so I can keep perspective. I remember sometimes when my kids were all younger and life seemed very overwhelming I would put myself in a time out. That's right, realizing that my kids were just being kids not doing anything wrong, I would say to them, "Mommy is overwhelmed I need a time out." I would go take a few minutes where I had some space but could still be aware and hit my own reset button. I have found hobbies and diversions that help me cope, find more patience, more enjoyment, more love, more fun.And as Dory says, "Just keep swimming!"
Just keep at it. I have hard days, I have times that I think we're not making any progress at all, I lose my temper. However, I know that if I can just "keep swimming" I will be surprised how far we've come, how much progress we've made and how much fun we've had getting there. Our family is older now, I can look back and see with ease the things that have worked and the things that were disastrous failures. In the end, it is the guiding principles that have made the difference in our home, that have helped us find our own normal and embrace it. I have to say we've covered a whole lot of ocean by just following Dory's advice in Finding Nemo and we've had some great adventures. No doubt we have lots more ocean to cover, certainly some uncharted territory yet to explore, and undoubtedly more amazing adventures as we just keep swimming.

1 comment:

Lisa this post couldn't have come along at a better time for me. I have been struggling with impatience with the whole family (spouse included) for the last week. Mostly I have been stuffing it an self-imploding, but some impatience has managed to sneak its way out of my mouth. Thing is ... I'm the one with ADHD not them (...yet, that we know of but the signs are there)!!! As a mom with ADHD trying to manage the family, it feels like the whole success of my parenting is dependent on keeping on top of my ADD and their traits, so that I end up full of impatience and lately - not able to relax and let things just be. I've been squashing ADD, not managing it. Thanks for bringing me back around with this post! Andrea

Thank You Psych Central and ADHD from A to Zoe

Thank you so much to Pysch Central for hosting our Mother's Day webinar and to Zoe Kessler from ADHD from A to Zoe for inviting me to talk with her about parenting ADHD kids. I had a wonderful time! I am excited to offer those who didn't get a chance to join us the chance to listen to the recording by following this link

Quote of the Day

"I love the jaws of life, you can cut through the hinges of a car door easily. I want to get some and keep them in my trunk, just in case!" --says the boy who says he has 'safety issues'

"A post hole digger?" said to Hunter as he rolled by on roller blades towards the side yard...he was trying to dig a fire pit and couldn't find the shovel.

"There's a snake in a boot on the freckle in the hole at the bottom of the sea!"

"Trust me, Mary, I am the King of unrealistic plans and if I say it can't be done, it can't be done!"-Mark, my husband and truly the King of Unrealistic Plans

"I am tempted to dance, BUT I won't"- Hunter (while working on school)

"You tell me NOT to do it but that makes me want to do it MORE. Now I HAVE to do it!"-Rachel (regarding licking the laptop screen)

"Processing thought - please hold and enjoy the music while your party is being reached."- Mariah (when she lost her train of thought -- don't know how she will find it while she is humming elevator music)

"SAFETY: Not an Option"(huge sign on the gates of a cement company...I think it belongs on my gate...do you think that they meant Safety: not optionAL)

"His middle name is "danger"? Man, I wish my middle name was Danger!"- Jaren

"You're making the left side on my brain hurt." -Rachel

You Might be ADHD if......

You might be ADHD if when you clean out your pumpkin on Halloween you think, "This is a big pumpkin! I wonder if I can fit it on my head?" and then TRY!

You might be ADHD if you try to hypnotize yourself with a set of ear buds by swinging them back and forth, back and forth in front of your nose. (Hunter)

You might be ADHD if in the middle of breakfast you run away from the table screaming, "Wait a minute while I get my plasma gun!" (Hunter)

You might be ADHD if you plan to have a huge statue of a garden gnome made with the eyes carved out so you can sit in it and watch people. (Rachel)

You might be ADHD if you think, "what did you do this weekend?" is a private and personal question. (Mariah)

You might be ADHD if you bring out the lawn chair, a glass of ice water and binoculars to stare at the sheriff who is clearly doing paperwork in your cul de sac, occasionally waiving. (Mariah)

You might be ADHD if you think fairy wings and a wand are good accessories to any outfit - and you are 17. (Rachel)

You might be ADHD if you want to hire a gospel choir to follow you around and sing highlights of everything you say.(Rachel)

You might be ADHD if when you find out the lamp is on/off touch sensitive you HAVE to touch it, then touch it with your elbow, then your forehead....then YOUR TONGUE.(Hunter)

My husband says I have a hard time committing to anything. I think it is a learned behavior. Like a lab rat that gets zinged by pressing t...

Box? What Box? Where?

"Are cannibals omnivores?"

"Hey, I came up with a new bathroom game! ...whhhhp... You throw the suction cup frogs...whhhhp... at the mirror to see if they will stick...whhhhp...I call it Tactical Froggy...whhhhp..." (Jaren 9 yrs old)"If you swallow gum will you blow bubble farts?" asked with a sincere desire to know...disturbing.(Hunter 11 yrs old)Jaren's (9 yrs. old) 2009 Christmas Wish List

Mini cactus from ThinkGeekHolographic keyboardWind tunnel to do tricks inCrash mat for when he can't use the wind tunnelPocket watches for his collectionLaser pointer with a clock on itA portable lie detectorand a bag of chips so he can say, "I'm all that and a bag of chips"

THE VOICE OF REASON

"I think I possibly might be considering going to regular HS." - Hannah throwing all caution to the wind

"Can we drop her off in a field...with a rod...and hope for a lightening storm?"

(directed to Mariah who had been pestering Hannah about eating more iron rich foods)

-----"Sometimes I wonder then I remember I don't want to know!"-----

"6160- the NEW 5150"

(6160 is our street address and for those that don't know 5150 is the legal code for INVOLUNTARY PSYCHIATRIC HOLD!)

-Hannah's NON-ADHD comments

OH YES... SHE DID JUST SAY THAT!

"I know its none of my business, that's why I have to be a part of it! If it was my business I wouldn't care. Everybody else's business is so much more interesting"

"You don't have to worry about having bad friends if you don't have any friends. HA! I win!"

"You keep interrupting my threats! You never let me get to the crocodile or the dental floss!"

Mariah: Did you know that if you say dolphin fast enough it sounds like gullible?Younger brothers: Doooooooolllllph.....hey.....Mariah!-----Rachel: Mariah get up and help you are just sitting there!

Mariah: I am NOT just sitting here - I am SENDINGPOSITIVE THOUGHTS!-----"I have a weakness, I feel it is my personal responsibility to let people know when they are idiots. After all, what if they go their whole life thinking they are intelligent and no one tells them they are not."- Mariah - said at church in front of visiting authorities

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About Me

Who knew? Though I planned on having a big family I certainly didn't plan on most of the members of the family having ADHD. I didn't even know what ADHD was back then but here we are and I can honestly say I would not change a thing even if I could.