Friday, June 5, 2009

two and a half

To tell you the truth, I've been procrastinating on writing a Rainer update because I didn't want it to be a "downer" sort of post. He turned two and a half on April 23rd, and right around that time he started his "maintenance" course of chemo. We were told that it's all smooth sailing once these kids start on maintenance--life gets pretty much back to normal, the child feels good, the hair grows back and all that. Well, as with many things, Rainer is a bit different than most kids. Instead, he started on his maintenance drugs and man, that little boy felt awful. Lots and lots of crying. So not what we were expecting. He's better now, but 5 days out of every 28 he'll be on the medication that really irritates him. Worsening the situation, he's developed a sensitivity to the sun, and sunscreen, so not being able to go outside in the middle of the day has been a challenge.Despite all these challenges, lots of good stuff is going on with Rainer::: I love his deep chortly laugh:: and the way he asks to nurse: "can I have some nursey on you?" So cute.:: when I come home from work, he'll rush up to me and announce "I'm off NPO!" meaning that he can eat and drink again after his medication that has to be taken on an empty stomach.:: he wears a daily "uniform" of a long sleeved pajama top and overalls. Very cute and excellent sun protection. Luckily it's been a cool temperate spring.:: just the other morning he started galloping. Such a joyful movement, and we're happy to see him do that because he's still not really running.:: I love that he's such a little person in his own right. He's started choosing things for himself in a grown up sort of way, it seems to me. The other night he chose "Dinosaur" as our family movie. (Ken's quick on the remote to fast forward through all the scary parts). At Subway he was very specific that he wanted Nacho Cheese Doritos as his chips.:: he's an outdoor boy for sure, when we've got the sun thing under control. He loves the sandbox, gardening, the hose and the trampoline. He wants to go outside first thing in the morning.:: he pronounces all the names of his medications and uses them in context. Very cute (and poignant too, I guess, if you think about it).Happy two and a half to Rainer. I can't wait to spend more time with this boy in the summer (only 1 more week to go!)

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Sweet Rainer, so sorry to hear the new medication is so hard on him. And the sun too. I just bought my little one a "super sun hat" (as we call it). The brand is Sunday Afternoons. It is great because it covers so much- my little one is allergic to sunscreen. With long sleeves, pants and the super hat we don't need any sunscreen.Even through feeling sick, Rainer is one of the cutest little guys ever.

happy 2 1/2 little (big) rainer -- boy, is he incredibly cute! your blog is one of my absolute favorites -- the simplicity, the focus on little comforts, luxeries, and beauties. i love it so -- thanks for sharing a slice of your days here. and happy summer to you and yours!

Chickadeefour--thank you for your nice comments about the blog. I was just thinking last night about "where do I want to go with the blog" and realized I'm already doing it--a focus on "all that is good." I'm really into positive thinking and loving the life we have.

What a lovely update about your wee boy. I love to visit and read about what you've been up to. It's a little place of calm I think and you always write in such a spirited and gentle way. I wish I could even begin to think about getting up early in order to blog! Bx

Oh God, You have made me love this boy like he were my all time friend! lol...I am soooo happy he's in the maintenance process now even if it's not going as it was supposed to... Things now can only get better and that's so good news!

About Me

Thanks for visiting my blog. I'm wife to Ken, stepmom to Ben, and mom to Jacob and Faith, Dieter and Rainer. I like the domestic scene, salty/sweet combos, recipe reviews, the smell of rosemary, babies, the feeling of having exercised, hand clapping rhymes, books, Friday Night Lights, teacups, and laundry that has been washed, dried, folded and put away.
My Faerie MB blog explores what to wear when you are 40+. But everyone is welcome, of course!