Adult Cystic Fibrosis Program

Adult CF Center

Accredited by the Cystic Fibrosis Foundation (CFF), we are a premiere Cystic Fibrosis Center serving Upstate New York. Our Center adheres to the stringent standards set forth by the CF Foundation using approved guidelines resulting in an appropriate management of patients with CF. We provide a team approach to care that includes medical, nurse, registered dietitian, physical therapy, social worker, and respiratory therapy cystic fibrosis specialists. We collaborate closely with our colleagues in the University of Rochester Medical Center Pediatric Cystic Fibrosis Center to assist adolescents and young adults in the transition from pediatric to adult care.

CFFC Education Night

It's only 27 days until CFFC Education Night - that's July 19th. We will be gathering at Steadfast, 200 East Ave. Rochester where the doors will open at 5:00 PM.

We'll start with food, beverages and socializing with the opportunity to engage with our event sponsors. The program will begin at 6:15 when Jackie Henry will introduce us to the resources available through the CF Foundation Compass program. After a short break, you can join one of the four discussion groups we have planned:

Dealing with the emotions and stress of CF

Managing the transition from adolescent to adult

Preparing for transplant and other mindful choices

Raising a child with CF

If you are planning to join us at Education Night, please complete the on line registration so that we can make appropriate arrangements for food and seating. You can find the registration at: https://www.surveymonkey.com/r/KB95G8V

What is Cystic Fibrosis?

Cystic fibrosis (CF) is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients. Common symptoms include: