A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Friday, January 13, 2017

2017!?

Wow!

It's crazy that it is now 2017! Where has the time gone?

The blog has been a bit quiet lately. Late in 2016 were a lot of grief "milestones" and I had to work through them.

November 11 - 5 years since Dan died - which meant that he had been gone longer than he was here
December 7 - Dan would have been 10 years old

And then Christmas rolled around, and it's just been busy.

I hope to be back to blogging on a somewhat regular basis soon.

So for now, here are a few Christmas pictures.

These are the GeoTrax train sets that we purchased for Dan and Daddy to play with. Shelby has been enjoying them too. Unfortunately, Fisher Price stopped making them so finding pieces either means paying outrageous prices for one or two pieces, or getting big tubs of random pieces for a better price as people clean out their unwanted stuff.

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About Me

I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.