Sunday, April 6, 2008

Thank you Make-a-Wish, Chuck E. Cheese, and Albertson's for a great send off party for Jessie's trip to Disney World! Tom and Mary, you are the best!

Jessie was able to invite her family, classmates, teachers and other special friends to enjoy a FUN afternoon at Chuck E. Cheese. Jessie had a wonderful time and we were so happy that so many came to join in the fun and send of Jessie in grand style!

About Me

Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain)
This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008.
This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before.
Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.