The 3rd Annual Benefit for the Fiona Rose Murphey Foundation Charitable Trust was held on the evening of September 15, 2017 in the Backyard of Chillin' in Lake City, Colorado. A Standing Room Only crowd enjoyed the music of Michael Martin Murphey, Kenn Lee and Jeff Heaton. We had a great silent auction and donations amounted to over $16,000 which will go to help children with Osteogenesis Imperfecta. Jeff and his wife, Shari, were perfect hosts providing breakfast for all of us the following morning and a BBQ lunch on Saturday. We auctioned off 4 autographed guitars and several other items. Special thanks go to Steve Ostrom, William Whiting, Charlie Morgan and Clyde Rutherford for winning the guitar auctions. A list of local sponsors is featured on our Sponsor page. Thanks go to the wonderful people of Lake City and everyone who attended for their generosity.

Jeff Heaton on Stage Kenn Lee

Michael and Kenn in the Coffee Shop Kenn, Michael and Jeff at Breakfast

FIONA'S GRADUATION

There were Two graduations for Fiona in Nashville this year. During her High school career she was one of only 25 freshman students selected to attend the School of Science and Math at Vanderbilt University - Graduation was on May 13, 2017 in the Wyatt Center Rotunda at Vanderbilt University. Students graduating are attending such prestigious schools as Yale, Johns Hopkins, Vanderbilt, Northwestern, Duke, Wesleyan, NYU, Columbia, Carnegie Mellon, UC Berkeley and American University where Fiona will be attending in the Fall. She is one of 25 freshman students selected for the Honors Progam at American. Attending school in Washington D.C. will bring a whole new set of challenges for her but also will be very exciting.

The second graduation was from Hume-Fogg Academic High school on Tuesday, May 16th, 2017 where she graduated with a Diploma with Distinction and a Diploma with Honors. We are very proud of her.

The Fiona Rose Murphey Foundation Charitable Trust helps children with bone diseases and other debilitating conditions and is a non profit 501 (c) (3) organization based in Georgetown, Texas.

Osteogenesis Imperfecta (OI) (Brittle Bone Disease)

Characterized by breaking of bones easily and frequently, often for little or no apparent reason, Osteogenesis Imperfecta is caused by imperfectly formed bone collagen, which is the major protein of the bones' connective tissue.

The condition is a genetic disorder that affects about one in every 20,000 children born in the U.S. each year, and usually affects the long bones in arms and legs.

With four different degrees of severity of OI existing in patients, some of the milder cases are often misdiagnosed as child abuse cases and some more severe cases do not allow the infant to survive. The majority of patients are affected with moderate OI, which presents itself with evidence of broken bones in utero, at birth, and shortly thereafter.

About Us

With more than 10 years of experience, Fiona Rose Murphey Foundation Charitable Trust functions in favor of children with Osteogenesis Imperfecta and similar conditions.

Thanks to the success of our fundraising we have been able to help Ryker Curtis, a young red headed boy who was born with over 18 fractures, with expenses relating to his surgery. Ryker lives in Nashville, TN and has had particular problems with his humeri (arm bones) fractuing them about every two weeks since September 2013. He will get both his right humerus and right tibia rodded in Omaha, NE and we are so happy to be able to help him with the expenses related to this surgery.

Another child with O.I. that we have also helped with pamidronate infusion "out of pocket" expense is Jacob Becerra from The Woodlands, TX.

Yet another child that we have helped is Noah Ortiz, a nine month baby shown in the picture wearing a helmet that the Foundation has purchased for him. Noah lives in Beeville, Tx and has O.I. Type III the same type as Fiona. Children with O.I. spend so much time in the first couple of years on their backs that their heads tend to flatten and this helmet will help protect and shape his head.

We have partnered with the Center for Courageous Kids in Scottsville, KY, a medical camp for children with chronic or life threatening illnesses. In November, 2015 they held an O.I. weekend camp for O.I. children and their families. We created a "Fiona Fuel Fund" which helped families travel to the camp. The actual camp is free for the children and their families to attend. We hope to continue this partnership in the future.

In addition to helping children with O.I. we have also provided assitance to a teenager who underwent a heart transplant and several autistic children so they can have access to and be able to afford learning devices.

See our services page for inquiries on acquiring assistence for your family.

Contact us at (855) 437-6350 in Georgetown, Texas, and find out how you can contribute to our nonprofit organization.