Friday, 18 May 2012

Dementia, the Sadness in my Heart,

I have been caring for my mum for nearly 5 years now and watched every step of the destruction this Illness brings and I will never compare how I feel or struggle to my mums But as a son to bear witness to this cruel terrible illness every day is breaking my heart ,at every point when I thinks what more can this illness do ,how much worse can it get ,Dementia decides to do more and make it worse so I will say what every organization wont my mum suffers and I suffer every day to witness it

So I will lay out this request to every organization involved and funded to work on Dementia and Caring who represent us tosit round the table and TALK AND WORK together to help families ,And I publicly ask them to meet with me; we need a new debate and more working together ,I will let you know who agrees to meet and listen to my personal experince and findings

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About Me

I am Tommy. For years I travelled the world running global merchandising operations for the Spice Girls, Kylie and U2. However, over the past few years I became a fulltime carer my late mum, Joan, who had vascular dementia. My motivation as a carer came from the love I had for my mum and I would do it all again in a heartbeat, but my experience has shown me just how tough it is to live with dementia and how many struggles it can bring.
For the last year, I have been collecting carer’s life stories to raise awareness. I felt passionately that no one should have to face the confusion, loneliness and isolation and my passion has to raise awareness of dementia and its impact on families has grown even stronger since my mum’s passing in September 2012 after five years caring for her. I am working on The Dementia Carers Voices project with the Health and Social Care Alliance which will build on my ‘Tommy on Tour’ campaign by engaging with carers, collecting their life stories and raise awareness amongst health and social care professionals on both dementia and caring.