Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.

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Monday, July 9, 2012

Wonderful day at the lake

Hi everyone, I didn't do a lot of stitching yesterday because we (my Dad, a friend and myself) were invited to my brothers house for lunch. It was a very breezy day but nice and sunny. Here are a few shots of the beautiful birds that visited his place.

The woodpecker was having a lot of fun at the feeder but as hard as I tried, I could not get a really good picture of him, so I had to settle for 2 different pictures of him on the tree.

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What is Fibrodysplasia Ossificans Progressiva (FOP)?

Fibrodysplasia Ossificans Progressiva (FOP) is "one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone." (Copied from the FOP fact sheet of the IFOPA.)

Money Raised

In 2014, we raised $1000.

In 2013, we raised $750.In 2012, we raised $1350.In 2011, we raised over $700.

A big thank you to all my dear friends who donated their time and their goodies for helping us in this cause.Love from Louise and Jaxon and his family.