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Tuesday, February 9, 2010

Sorry, I once again don't have any pics of Jax to post. Thanks for your prayers for my Libby, I haven't heard anything today. I text her once this morning and didn't get a response. I will wait until she texts me. If she's lost her love I need to let her grieve and tell me in her own time, even though it is killing me.Jax had another great day, he's getting back to his old self, squirming around in his bed until I finally laid it flat and moved the pillows so he can roll a little! I mentioned to them this morning that if he's able to stay off the vent all night can we just go home from PICU? The attending was a little nervous, she was like, "do you have help". Hello, whats the difference from normal? I take care of him everyday! Duh people.Its crazy how being in the PICU for more than a couple of days brings back memories. I don't know how I did this for 120 days! I have been starting to go crazy wanting him home after just 11 days, how ever did I do it? Plus not holding them for long periods of time when they are just to sick to get out of bed. I went months without holding Jax, and 5 days of not holding him was making me crazy! I'm just glad he did so well this time. Yes, he was critically ill, requiring mechanical ventilation and showing how sick he really is, but his pressures stayed up, avoiding art lines and pressers. And we got IV's in him, avoiding central lines and those infections!So I'm going up to the hospital tomorrow prepared to bring my little man home, we have a lot to do. Our background checks finally came back, so tomorrow we can fax our home study to DCSF. So hopefully this week we can go meet this baby girl! Also we have a trip to get ready for! Jax is so excited to see his girlfriend Zoey for her birthday! And play in Disneyland with them, Ella, and Peanut! Could it get any better?

So happy to hear Jax is feeling better...and can't wait til you get him home...Prayers are being said for Libby and her family. I so wish I could meet up with you all at Disneyland...don't think we are going to be able to make it down there this go around...but I know someday hopefully we will get to meet. Have a great time! Can't wait to see all the pics!

Hoping and praying that home will be where we hear from you next.loved catching up today and we can't wait to see you guys.So proud of your fighter boy ... once again he shows us what a tough little guy he is.

Here's hoping, hoping, hoping you get to go home!!!! I honestly don't know how you do it all. You're amazing. I"m excited FOR YOU and your vacation. You all deserve it! (I'm a little jealous too - I"m dying to meet you and that sweet little angel of yours!) My thoughts and prayers are with Libby and her family.

So glad Jax is doing better! I'm crossing my fingers you get to go home today! I love your attitude about it all. Even though your baby is in the PICU, you keep your head high and look forward to the good to come. Thanks for the updates!

So good to hear that Jax is feeling better. I'm sure you can't wait to be in the comfort of your own home:) Fingers crossed that that is where you will be today! Prayers and positive energy for Libby and family will continue.

Read about our adoption journey here!

Jaxsons story

About Me

Jaxson was born on Nov.20 2005 with Trisomy 21. He has spent half of his short life in the hospital. He has heart defects,pulmonary hypertension,severe reflux,sleep apnea, and a hypoxic brain injury that resulted in severe siezures.This is his journey.