Tuesday, March 31, 2009

Move over MTV - you ain't got nothing on Chuck E Cheese! We were in Nashville to visit Camilla's new doc during her spring break! We took her to Chuck E Cheese one afternoon and she had a fun time (this is where the real spring breakers go)! We also strolled down Broadway and 2nd Ave. in downtown Nashville-

Monday, March 23, 2009

OK - call us what you want - but we had a blast! On March 14th Brandi Boutwell, Amy Abrams and I went to see New Kids on the Block in Biloxi (yes this was the second concert in 6 months)! The concert was awesome - especially the view from the front row - it was worth almost getting kicked out! We met up with my friend Amy Watt and her friend Kelly Ishee while we were there and we all went to dinner, saw the concert and did a little NKOTB stalking (ya know, just a regular Sat. night)! Sorry for the delay in getting these videos up - enjoy! Can't wait to do it all over again in B'ham! 5-STAR

Wednesday, March 18, 2009

Thursday, March 12, 2009

I just wanted to post some fun pics of our 'little big girl'. While shopping in Target the other day she got into Cici's bag of apples and ate an entire apple while we were shopping. I had to wrestle it away from her for a moment just to remove the stem so she wouldn't eat that! Since the weather has been nice, Camilla has loved getting out and playing the yard. She loves her Barbie jeep and her Dora bike, now if we can just teach her to make them 'go'!

Wednesday, March 4, 2009

This weekend we got the chance to visit with cousins Jake, Wessie, Gillian and Brantley at Cici's house. Brantley and Camilla are only hours apart in age so its always good to see him! We had alot of fun, especially watching the kids put on a show!

Camilla's surgery to implant the Vagus Nerve Stimulator was February 24th at Children's Hospital in Birmingham. She did great, she is always such a little trooper about the doctor visits, tests, surgeries and other procedures that we have to put her through. She came through the two hour surgery just fine and has recovered nicely at home since then. We are still seeing seizures everyday, in fact they seem to have worsened for the time being, but we are still hopefull that after adjustments to the device and the trauma of the surgery wearing off we will start to see improvements. Please continue to pray that this device will stop her seizures and help to reduce the amount of the medications that she is taking all resulting in improved learning skills and an acceleration in acheiving developmental milestones.

Camilla's Story

Camilla is such a blessing! In April of 2006, at just 6 months old, she was diagnosed with Infantile Spasms, a very rare and devastating form of childhood epilepsy. Despite numerous medications, the Ketogenic Diet, a Vagus Nerve Stimulator and a Corpus Callosotomy she continued to have daily seizures until undergoing a grid/resection surgery in March of 2012. She is still challenged by severe developmental delay and she doesn't speak but this sweet, energetic and happy little girl amazes us everyday with her grace, her beautiful smile and her contagious laugh.