Subscribe to this blog

Follow by Email

Passion is the Fuel

I've been in treatment for Lyme Disease and Co-infections now going into my 6th year. I still sometimes look back and think man I've come a long way. I can somewhat keep up with my 8 year old son and homeschool him full time. I can walk a few miles every week and not be sick for days after. I have stretches of time where I simply forgot I'm sick and enjoy what life brings. On the days I need to regroup and rest I am reminded that I still need to pace myself and that Lyme Disease never seems to be fully gone. I still worry about my son if he has Lyme Disease from me. He now needs to be on a similar Celiac diet as me and is doing much better on it. I never thought of myself as someone who could bring about change, be a leader, a loud voice in the crowd, or a trend setter. I have always thought of myself as the Listener, the Advocate, the Loyal friend, the Kind one, the Gentle Soul. I'm not saying any of these qualities are more important than any other ones.

But as I reflect on where I am now I realize I am in a different place than where I started over 5 years ago. My experiences as a Lyme Disease patient has shaped my heart, soul, mind and spirit. And there is no going back. I cannot help but want to help others with Lyme Disease not because I have all the answers although I wished I did. But because its an overwhelming internal passion. Its a passion that fuels me to keep going. I cannot pass by a post on facebook that says someone is having a bad day, loosing hope, or feeling alone. I have felt those feelings many many many times. I just want other's to know they are not alone just like someone did for me so many times before. To Pay It Forward. I truly believe in my heart of hearts that what goes around comes around. For every action there is an opposite and equal reaction. If you send out anger, resentment, and hate that's what you will get in return. If you send out humble, free love with no strings is always comes back.

Even at my sickest giving to someone else has pulled me through the darkest days. And there are times I've helped someone out and nothing happened in return for months. But when I least expected it a kindness always came my way. I can't explain why the world works this way. Why our universe seems to be based on these invisible principles. I never thought just breathing and laying on a couch fighting for my health was a protest and valiant thing on its own. That those simple actions were heroic and powerful as much as someone holding a protest sign on a corner.

I used to minimize the power of photographs, poetry and words. I have stopped doing that now. I realize our very breathe has meaning, power, and contributes to the very energy all around us. I heard so many times while I was sick I was valuable even sick as hell. I thought Okay? How is that exactly? I didn't realize just pushing forward inch my inch as best as I could was a story of hope for someone else out there. But its not just my story that matters. All of our journey's and stories matter. Good or bad. I used to think my very presence in this world never mattered and no one would care if I left. Be careful what you minimize. You never know the impact you are making until you can see yourself and circumstances from a different view point.

Perspective is everything. Its taken me years to see more and more how each life has an impact and power. We forget how powerful we human beings are in the midst of so much pain and hurt and destruction. We have no idea what those moments will bring out in us and the long term impact they may have on own very souls. Please don't minimize your awesome tragic beauty. Your struggle through Lyme Disease might be carving you into something greater than where you started. And you never know what the impact of that will be. My journey has made me a passionate advocate and activist. I'm still a human being. I still wait some days wondering how long a stretch of good health will last. But I find as I heal I am more focused on living everyday to the best of my ability.

My perspective has widened and I see now the ways I can help. I also learning boundaries with it. Having times where Lyme Disease is set to the side so I can join the joys of living. I feel like the Lion within me is tamed. He tries to come back and bite me but I know how to put him in his place. The whole process of my healing is not perfect and I still need some level of treatment and medical support. But my heart and soul are free. They are no longer run by an illness. I plan to keep it that and I plan to rebuild myself and love myself one day at a time.

“I can do things you cannot, you can do things I cannot; together we can do great things.”

Popular posts from this blog

When I was diagnosed 4 years ago I never thought I would of been taken this journey, I thought just take the antibiotics and everything would be done and over with. I also thought Lyme Disease was the illness that would never get better. I am still in treatment for Bartonella a nasty bacterial infection ticks also carry. It makes my hands, feet and face feel like they are red hot on fire for no reason. I don't sleep well and I get cranky more than I would like from feeling so darn uncomfortable. I have been off any heavy treatment for a while and now just using herbs to kill this stubborn Bartonella. Sometimes I wonder if I will ever truly "recover" fully from this Late Stage Lyme and Co-infection's. I am fortunate that Lyme led me to my Celiac diagnosis and now after close to two years on it I have gained 15lbs and yes that's a really good thing. I weighed 97lbs for a long time and barely had any strength to do anything. I can now walk a few miles a we…

This photo I took a few years ago holding my camera in one hand praying I got the right angle. I have no make up on to cover up the acne scars or tired eyes. I wanted this picture to tell my truth. I never thought I would be using to tell my Lyme Disease journey in such a powerful way. Please feel free to share it around. It really says in few words so much of what I have dealt with while in treatment over the past 5 years. It tells a truth that words cannot express.

I asked my son to draw what he thought Lyme Disease looked like out of curiosity. This is what he drew. I was floored. He understood way more than I gave him credit for. No child should have to deal with a sick parent. And I hope I keep getting better from here so he can have a fully operational mom. I am so lucky to have a beautiful boy.
He is …