Sunday, November 2, 2008

Weekend Re-Cap!

All in all we had a really good (BUSY) weekend! :) Isn't that the norm around here? Friday night was Halloween. Saturday I had both my little nephews for a while and that was fun. Britt ended up taking the older one to his ballgame at 4:00. My Mom came over and watched the younger nephew and Blair while I took Baylee to see High School Musical 3. She LOVED it! She even said right when it was over that she didn't want to leave the theater! TOO CUTE!

We let her sleep in the tent last night. Yes, we set up the HUGE tent in our living room and Britt and Baylee slept in it all night! She was the happiest little girl that I have ever seen! She could barely go to sleep she was so excited!

Today Britt took Baylee to church. We haven't left Blair too much at church because she gets really upset and scared. I know that all little kids have to go through this, but with her belly and everything I just worry. When she was still an "infant" she would just sleep through the service. Now, I'm worried that she will start singing and stuff during the sermon. So, we will have to figure something out. Like going to Saturday night and Sunday service or something like that. We had our Discovery group meeting tonight and that was great! Great food and great company!

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Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!