Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...

Gosh! I hope you feel better, soon! How are your T3 and T4? From what I have been reading, if the antibodies are still high enough, you can get an antibody induced toxicosis, even though your TSH is high or normal.

Just want to share I have been hype before
(I have Graves active hyer right now) and I had some of the same symptoms.

The fatigue was just as bad as when I am hyper. Hard to lift my arms, brush my hair, do my daughters hair. Also had the hair loss too. I am not sure about the shakes.... I have only had those being hyper.

Hope you feel better VERY soon.. God Bless and you'll be in my thoughts and prayers.

Just want to share I have been hypo before
(I have Graves active hyer right now) and I had some of the same symptoms.

The fatigue was just as bad as when I am hyper. Hard to lift my arms, brush my hair, do my daughters hair. Also had the hair loss too. I am not sure about the shakes.... I have only had those being hyper.

Hope you feel better VERY soon.. God Bless and you'll be in my thoughts and prayers.

Wow... The highest mine has gotten is 6.3 and that was the latest tests. I had all the same symptoms as you have and a few more, I didnt have heat intolerance but I kept getting hot flashes. I reduced my meds down 100mg a day and it made a huge difference. Both my free Ts were on the low side of normal. You should find out what yours are and go to see your doc to see what he wants to do. Hypo really sucks. I would take hyper any day if the heart stuff didnt come with it.

that was the other symptom I forgot to mention, High heart rate, my pulse was 100 so I'm not sure whats up...I'm only taking 20mg of Methimazole a day and I have been for a while and swing back up to hyper sometimes. I think that maybe they got someone elses tests and I am going to ask them to run them again. Thanks everyone for your input and encouragement....have a great day!!!

Hi! if your tsh is that high it usually means the t 3 and 4 is low. make sure you get those numbers, this sounds like you are over medicated. I've heard many say hyper and hypo symptoms can overlap. Get your copy of tests all the time, that way you can log how you felt at each dose or level.Like right now you feel lousy with this lab result. I get copies and write how I feel on them.Sometimes you forget how you felt when lab work got done. After awhile you can see at what level you felt better at. Sometimes I would think I was hyper and then went to the appointment and he tells me I'm more hypo So the symptoms can be confusing.Most feel best somewhat in the middle range or a little lower of t 3 and 4 (free) As far as tsh around 1 or 2 is better.

I suggest not advise you to add a Beta Blocker into the mix it will make you feel a lot better and aleve most of your Symptoms. It worked like a dream for me. As I was out of control too!
Hope all gets better ask your Dr. to add like Propranolol, or wahtever HIS advise would be but that isthe only way at this time to feel better.

I did get all my numbers and my T3 and T4 are within normal range. I remember HYPO very well. IT WAS HORRIBLE and I'm not having any of those symptoms. As far as bathroom goes, I'm going way more right now. BOTH! I'm exhausted and I cant sleep. I called the doc and asked to have the test repeated, I'm just waiting for them to call me back. I did do a Beta Blocker and it made my life miserable. I'm not a fan...plus my heart isnt beating out my chest right now, pulse is a little high, but not like it was back when i was taking the Beta Blocker. Thank you all for your input, I'm very frustrated and tired of dealing with all this. I have a gut feeling that something else is going on but I dont know. I dont want something else to be wrong, but if it is..I want to know. Plus, docs make mistakes all the time and it woudlnt be the first time I was over medicated because of a docs lack of attention. So I will push and keep going. I hope everyone has a great day!!

get your Doctor to check your Cortisol level as this can cause the T3 and T4 to be normal along with the TSH being high.
Maybe your Cortisol level is too high.
This is a stress level hormone that the Adrenal gland produces when there is inflammation.
It can give these symptoms.....
# A quick burst of energy for survival reasons
# Heightened memory functions
# A burst of increased immunity
# Lower sensitivity to pain

Hi - Get the Free T3 and the Free T4 tests done, not the T3 and the T4. Please post the lab results and the ranges and we'll help you figure out exactly what those numbers mean to go with the high TSH. You could be 'low normal' in the Free Ts and not feel good.

ok talked to the doc office, no repeat on blood test because it shows that I MUST be hypo. No one wants to hear the fact that I'm super hot, anxious, cant sleep and going to the bathroom constantly. THe other thing I'm annoyed about is that everyone, no one on here, just other people all want to tell you what to do, you just need more exercise, get up earlier, Etc. FRUSTRATION!!!!

At the ER on Feb. 14 an endo put me on 40mg methimazole and 2 1/2 weeks later I got bags under my eyes, 2 weeks after that I have hives and my face has swelled up like a balloon-I still can't look at myself because it is horrifying. I also take selenium, Acetl L-Carnitine, CoQ10, Curcumin, Amla, and Magnesium Glycinate. My labs on Jan. 19 T4-3 and TSH- .01 then my eye started to hurt pressure...

Hi,Came here looking for advice/info/support from other people with this disorder. I'm a male, 38 and I was diagnosed with graves Mid Feb, 2018. My GP tested me back in Oct 2017 twice before sending me to an endocrinologist(had to wait 5 months for appt!(NYC area). Then endo did the following blood tests. I am including the details of each test. My apologies for so much info, but I'm pretty...

All content posted on this site is the responsibility of the party posting such content.
Participation on this site by a party does not imply endorsement of any other party's content,
products, or services. Content should not be used for medical advice, diagnosis, or treatment.