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Time goes on and life changes, but I keep going. In my early thirties, I made a major life change. I went from being in poor physical shape to being incredibly active. I biked parts of Europe, the most difficult being crossing the Alps. I also biked in Great Britain, the Highlands of Scotland, the Lake District, and Wales. When I was home, I was leading bikes rides for my local bike club in New England. I led as many as 17 rides a season, many of them cross country. I also was a member of Cycle America and went...

It is possible to live well with Parkinson’s disease. Before Parkinson’s, I had a successful career as a news writer, editor, and educator. I was happily married and had a wonderful family. I had a really full life. But, in 2014, after a very confusing 6 months of symptoms, I was diagnosed with Parkinson’s disease. I knew very little about it. My first reaction was ‘What is going to happen to me? What’s going to happen to my family?” Like most people who received this diagnosis, I was left in the dark. There was no place for resources. But I...

I'm still me. Both my parents are refugees from Germany. I grew up in the midwest and had a great childhood and a great life. When my dad was 64, he was diagnosed with Parkinson’s disease. Little did I know, I’d face the same destiny at exactly his age. For a number of years, I worked as a teacher and counselor with adolescents. Then I spent 15 years as a human resources manager before transitioning to cross-cultural training and work around immigrant and refugee mental health. I had the opportunity to work with a lot of really vulnerable communities, particularly...

Being able to work for others has been the best thing about Parkinson’s. When I was 48 years old, I was diagnosed with Young Onset Parkinson’s disease. It was the last thing I was expecting to hear. I went to a physical and the doctor said everything looked great. But as my appointment was ending, I mentioned to her that typing had become difficult. My left pinky would stick and I’d constantly end up with a row of As. What followed was a whirlwind. She had me perform a couple of finger movements before telling me that I needed to...

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