It
is amazing how fast time flies. In July
it will be 4 years since Myla was diagnosed with Nephrotic Syndrome (kidney
disease). What an emotional
rollercoaster these four years have brought us!

About
two months ago, Myla started getting really sick; nausea, dizziness, leg pain,
fatigue, shortness of breath, and horrible diarrhea just to name a few. On one of Myla’s monthly blood draws we found
out her body was overdosing from one of her meds. They took her off of it for 5 days and then
put her back on. During those 5 days,
she seemed to be doing better but as soon as we put her back on she started
getting worse again. I took her off of
it again for a week and then the doctor said to give it another try. He felt her symptoms were not related. I’m not sure if I believed him but I followed
his guidance anyway. Myla is so sick right now that she cannot
play with her friends. Most days, home school
or anything involving moving her body/hands she cannot do. She just lays there. I wish I could describe the feeling of being
a mommy of a sick child. My heart is
breaking for her and there is NOTHING I can do to help.

On
Wednesday of this week they took 4 or 5 vials of blood and then yesterday they
took 7 more. Myla refused to go to the
doctor yesterday, so I promised her that she would not get any shots or blood
drawn. Normally she would get her blood
drawn the day before a doctor’s appointment, and then at the appointment the
discussion would include her blood work.
Well yesterday was not that way.
Because of how sick she is he wanted to test for more things. Myla had to get 7 vials of blood taken and
then she passed out from it. I felt like
such a horrible mom. She was so mad at
me for “lying” to her. Lesson
learned!!

I
know moving to Utah was and is where we need to be but at the same time it has
been very lonely. We had such an amazing
ward back home that we considered family.
We really do not have much of a
support system here and that has made it really hard for me to handle all that
life throws our way. Thank you for all
the love and support our friends and family have shown us. We sure love you guys!

Myla discovered Shel Silverstein and in 2 days just about read the whole book. One of my childhood favorites and this book came from when Kirk was a little boy.

I have the best job in the whole world! I'm a mommy... I have birthed three amazing, sassy, BUSY, little girls. I have gained two wonderful kids, one boy and one girl. That makes five kids under one roof!
I love being a mommy, let me say that again, I LOVE being a mommy. I also love making crafts, sewing, reading, being out doors, learning, and just having fun!