Table of Contents

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Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983 (ICPSR 8948)

Principal Investigator(s):
Aday, Lu Ann;
Andersen, Ronald M.

Summary:

This collection examines three programs designed to
facilitate the discharge of ventilator-assisted children to the home or
a homelike alternative. Program personnel, advisory board members, and
the primary caregivers of the children were interviewed as part of the
evaluation. This study is the first comprehensive and systematic effort
of its kind to develop a conceptual and methodological approach to
gathering data on this new population of technology-assisted children.
The ultimate outcomes examined were the ventilator-assisted child's
quality of life, the stress and adaptation experienced by the care-
giver(s) and family unit, and the cost-effectiveness of the alternative
home care arrangements relative to traditional inpatient care.

This collection examines three programs designed to
facilitate the discharge of ventilator-assisted children to the home or
a homelike alternative. Program personnel, advisory board members, and
the primary caregivers of the children were interviewed as part of the
evaluation. This study is the first comprehensive and systematic effort
of its kind to develop a conceptual and methodological approach to
gathering data on this new population of technology-assisted children.
The ultimate outcomes examined were the ventilator-assisted child's
quality of life, the stress and adaptation experienced by the care-
giver(s) and family unit, and the cost-effectiveness of the alternative
home care arrangements relative to traditional inpatient care.

Access Notes

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Dataset(s)

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Study Description

Citation

Aday, Lu Ann, and Ronald M. Andersen. Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983. ICPSR08948-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1988. https://doi.org/10.3886/ICPSR08948.v1

This data collection includes frequencies, record
layouts, or maps for each data file. In addition to the primary data
collected in the survey, analytic variables generated through combining
categories or sets of variables in the Caregiver Questionnaire are also
included.

Methodology

Data Source:

personal and telephone interviews, and American Hospital
Association Guide to the Health Care Field, 1984 edition