About Me

Leah

I am a stay at home Mom of a wonderful special needs little boy. My son just melts my heart; he's so loving,caring and just full of compassion. I'm glad he's mine. I wouldn't change a thing. He's my inspiration for most of my crafting adventures. We are always making something together - I have great fun with him. I'm married to my high school sweetie. We celebrate 29 years this year. WOW! has it been that long??!! Wait! We've known each other 37 yrs already - WOW! I'm involved with our son's school. I am a published writer of children's books. I am also a lover of writing poetry.

Sunday, December 18

Greetings Everyone! Hope you're having a great day! Friday was a bit rough. I went to my Endocrinologist for my Osteogenesis Imperfecta. I needed to see where my levels were at to know our medication regime. They took 6 vials. They did a lesser infusion, but the side effects were still a bit rough. Today being Sunday I am still experiencing bone pain. The nausea has settled quite a bit thankfully.
I am to begin a daily injection with a new medication to build my bones. This will continue for two years. I was warned of the side effects with this medication. After which I will receive another medication to sustain the gains from the daily injections. I then will begin another series of infusions.

The daily injection potential risk of Osteosarcoma, possible bone cancer. The medication is Forteo. I have been talking with some of my friends who also have the rare disease that my son and I both have. They have been encouraging me and also telling me how they reacted and responded to the injections.

The little girl in the picture with me has been such a blessing. She's such a sweetheart. She's very special to me.

Grace & Peace,

0
Comments of Appreciation:

Post a Comment

Thank you so much for stopping by! I appreciate all your comments. I do read them all. I just wish I could tell each and everyone of you how much you make my day with the notes of encouragement. Thank you!!!