Canadian Coalition for Genetic Fairness (CCGF)

Working together to prevent genetic discrimination for all Canadians

“Genetic Discrimination affects us all! Who has perfect genes?”

The Canadian Coalition for Genetic Fairness (CCGF) is a group of 18 organizations dedicated to establishing protections against genetic discrimination for all Canadians. Our mission is to educate Canadians about genetic discrimination and to influence federal and provincial governments, and other relevant organizations, to create positive change.

Share Your Story

The Canadian Coalition for Genetic Fairness is seeking stories from every day Canadians on how genetic discrimination has affected them. Please submit your story here. We will use your stories to demonstrate the impact that genetic discrimination is having on Canadians across the country.

Recent Updates

The Genetic Non-Discrimination Act was passed into law on May 4, 2017.

For now the GNA is law and the genetic test information of all Canadians is protected.

Some clinicians from the HD Community are making it clear on patient files that genetic information is protected and not to be shared without explicit written consent of the patient. In your communities this may be a good suggestion to health care professionals.

The Quebec government has now filed a reference with Quebec Court of Appeals. If the Quebec court rules against the GNA, the case will go to the Supreme Court of Canada.

CCGF is working with lawyers and constitutional experts to advocate for this law so it is not overturned.