Myalgic Encephalomyelitis (ME)

Profile

My name is Gabby Klein. I am a wife, mother and patient advocate. I had a vibrant and fulfilling life when 13 years ago, at the height of my career, I was struck with a neuroimmune disease that I didn’t know existed – myalgic encephalomyelitis (ME).

ME is a disabling and life-altering disease. Most patients suffer tremendous losses in their lives such as their health, jobs, education, financial security, homes, social activity and social interactions with family members and friends. The majority of patients are homebound and many are bedbound.

ME patients have been mistreated by the Department of Health and Human Services (HHS) for decades (see About ME tab). Therefore, my goal as an advocate (health permitting) is to reveal the mistreatment perpetrated by the government on one million American men, women and children suffering from ME. In addition, I will pressure HHS to use the appropriate name – myalgic encephalomyelitis – for the disease, to use the criteria created by ME experts, to increase federal funding for research and to disseminate accurate information to medical professionals, the media, and the public.