Sarah Ezekiel

'The need for change bulldozed a road down the center of my mind'. Maya Angelou

Comments

Hello Sarah

My brother in law, Simon, was disgnosed in December this year with MND, I have just been speaking to my sister, it seems the effects are progressing, he has gone from a very fit man to a stooping figure who is nopw having speech and breahting difficulties. I am very close to Siimon and would do anything to arrest his illness. I ahve jsut read your 'About Me' I found your courage and positivity inspiring, thank you. I am going to forward your web site to Sue as I have no doubt this will give her great support through the journey that lies ahead xx

(Posted on 2016-08-19 18:54:00 by Peter Holmes)

Richard Cave mentioned your work and I agree with him, yoou are so amazing. To me you are an inspiration to try harder because I am useless at art for that I thank you.
You are one amazing lady :)

(Posted on 2016-04-26 04:11:00 by Linda)

You are amazing!

(Posted on 2014-01-30 11:02:00 by Maria)

My wife was diagnosed with MND 2 years ago and now she has lost the use of her arms and legs and her speech is very slurred. She has just been assessed by the Speach team from the Neuro Centre at Putney and she will be getting soon an eyegalze screen. The team mentioned all the good work you do a suggested we get in touch.

(Posted on 2013-10-11 16:13:00 by Ken)

Lost my partner just over 2 years ago to MND and he had taken the step to communicate with you Sarah . You were somone who helped him by helping him understand what he had. Siobhan xx

(Posted on 2013-09-20 19:22:00 by Siobhan)

Dear Sarah, I echo what Graham has said "You are indeed an inspiration to many." How are you? Kind Regards.

(Posted on 2013-08-16 19:34:00 by Mark)

Hi Sarah, just wanted to say that you are an inspiration to people. I just visited the Daily Mail website where I saw many of your paintings and you have your own exhibition. That is something to be proud of. Brilliant!

I have written before, I will write it again. You are indeed an inspiration to many. Continue to lead from the front. My thoughts are with you and yours.
Graham.

(Posted on 2012-10-27 06:48:00 by Graham)

Hi Sarah, I think you are fabulous! You are a selfless, giving wonderful person! Keep up the great work, you are amazing for raising public awareness of MND!

(Posted on 2012-09-30 12:28:00 by Una)

u are an inspiration. hopefully you can help raise awareness for this terrible disease.

(Posted on 2012-09-27 20:49:00 by stuart)

Sarah - you are fantastic! Superb radio interview. Thank you for brightening up my day with your terrific artwork and insiring me with your courage and optimism.

(Posted on 2012-09-24 13:42:00 by dee richardson)

Sarah, you truly are an ispiration and a beautiful human being, to donate the proceeds of your work to others is such a selfless act, I know your work and love it

(Posted on 2012-09-24 13:06:00 by Mark Mordecai)

heard the article today on radio four. I'm sure you're an inspiration to both fellow sufferers and to the rest of us. Your work is great and the Tears are particularly moving having heard the article. Do you have an online sales site for your work?

(Posted on 2012-09-24 12:51:00 by Michael Carden)

Hi Sarah. like your last link just heard you on Radio 4 I agree what an inspiration you are. Good Luck with the art show lovely pictures. and from your pictrues you look fab and so happy, Good Luck with the future.
Angie

(Posted on 2012-09-24 12:05:00 by Angie Newbery)

Hi Sarah. Wonderful just wonderful! I've just been listenitng to an item about you and your art on Radio 4 You and Yours. You are inspirational and I love your art work. I'm sharing this links with our group and other friends. Keep up the good work. I hope you achieve your Christmas target and keep on making such a fantastic contribution to art, technology and positive living. Thank you.

(Posted on 2012-09-24 11:59:00 by Lydia Goodliffe)

Hi Sarah. Are you the Sarah I went to cheder with at Bevis Marks/Lauderdale Rd? My maiden name is Nunes Vaz. I live in Walthamstow and I understand you're exhibiting as part of the Art Trail this year. I was running an event today; will try and get down to see it. x

(Posted on 2012-09-01 19:24:00 by Helen Lerner)

Years of admiration Sarah. I feel as though I know you. You are an inspiration to us all.
Graham.

(Posted on 2012-07-12 18:23:00 by Graham)

Three weeks after a flu shot my mother was diagnosed with severe arthritis ,then over a year later MND (brain & spine). She only lived less than a year after that.
The one saving grace in knowing what was to come, was that I had time to say I love you and thank you mum. We also shared a lot of laughs, even near the end.
It made me realize how much the rest of us waste time staring out of windows when that is all some people are capable of.
Thinking of you and your family
Love Paul

(Posted on 2011-06-17 19:59:00 by Paul Robertson)

Hello,
I am familiar with the disease (ALS). My mother was sick a year before she died last March 2010. I wish you courage and I think very much to you and your family. All my best. Yours sincerely.

(Posted on 2010-11-15 20:08:00 by Mado)

I'm trying to find answers since my daughter Keri died at 29, after a year's diagnosis. Can you tell me how far from pregnancy your symptoms started? Did you have any root canals before symptoms? Flu shot, yeast problems, EVER had Mononeucleoisis? thanks Sarah. I know there are connections, and I can't get researchers in the states to so much as reply. Thank you for your time. I have your video linked on Keri's website.

my brother has mnd an we only found our few weeks ago an we dnt no wot 2 do his only 20 an its really sad that he has 2 feel like this.. its not fair.. if there is something that cn help him plz tel us..

(Posted on 2010-04-13 12:46:00 by tanya)

I have been totally inspired and deeply moved by your story Sarah. Thank you so much for sharing it with the world.
Love from Nancy (Canada)

Keep going Sarah, you are an example to many, many people.
Love from Belgium.
Gilberte

(Posted on 2010-02-04 18:50:00 by Gilberte Vermeulen)

Dear Sarah:My granddaughter Michelle told me your story today, and I am deeply touched.I will hold you in my thoughts and prayers. May the good Lord bless you.Hang in there, brave Lady. So many are rooting for you.From Texas with loveElfriede

(Posted on 2010-01-02 02:53:00 by Elfriede Hall)

Ok - You were totally awesome in 2009 - but just wait until they see what you will do in 2010! WOOT! GO SARAH!!

Sarah has entered the 'Social Media Ad Campaign' category as she is running an advertising campaign via social media ... if you think she is in the wrong category then you have a lot more issues than your blatant lack of compassion. Whilst I do not agree with some of the content of the short film/advert, I totally disagree with Clearcasts decision to only show the advert on TV if all images of twisted limbs are removed. They are paramount to demonstrating the effects of MND so to remove them would render the advert useless. Madness

I totally agree with TRACY! Fernando is an ignorant person! MOTOR NEURON DISEASE is something that more people need to be aware of because it can HAPPEN TO ANYONE AT ANYTIME!!! There's NO CURE and NO TREATMENT. My mom suffers from it and i want to THANK SARAH for being BRAVE ENOUGH TO MAKE A VIDEO AND SHARING IT WITH THE WORLD!! It's because of IGNORANT/DISGUSTING people LIKE YOU FERNANDO that people with MND lose HOPE!!!!! You are an IDIOT!!!

(Posted on 2009-11-20 22:40:00 by Kinga)

my god what a ignorant twat fernando is , he just doesn,t get the point, he obviously is totally ignorant of facts and brains !!! hopefully he will never encounter MND but if he does then maybe he will change his way of thinking ! what an UGLY person he is!!!!!!!!!!

(Posted on 2009-11-20 22:32:00 by tracy)

I wont vote for you because you are in the wrong category! What does sickness have in common with social media AD campaign?? It s very ugly to see how you sell your sickness to get votes.
Best regards,
fernando

(Posted on 2009-11-19 15:34:00 by fernando)

sarah - i think of you often. you give me strength, and remind me why I must stay focused and vigilant each day. We'll ride Boston to NY till they #endALS!

What's up Sarah?!
I am happy to vote for you. I have never heard of this disorder. There should be more public awareness so that research can be funded.
Your commercial was on point! Sometimes, you have to be graphic in order to drive a point home. Fight on1

Brenda

(Posted on 2009-11-08 18:27:00 by Brenda)

sarah, good to "know" you. You are blessed that you can still stand. I cannot stand, walk, eat, speak,shallow breathing, but I do have some use still of lower arms and hands. I am interested inhow you "talk". soon I am afraid I won't be able to use my hands. I have hospice too....they are wonderful. God Bless you. Keep up the fight and pray for a cure!

(Posted on 2009-10-31 21:04:00 by Carolyn Way)

Hi Sarah, the advert is such a great awareness raising tool and its censorship is scandalous. I've no doubt that you will keep battling for it to be shown in its entirety and I hope Clearcast wake up and smell the coffee. Best wishes, Paul

Sarah the princess!
Thanks for all you've done about ALS MND.
Someday We'll celebrate the day of finding cure for sure.
Best wishes, Alper

(Posted on 2009-09-06 09:59:00 by Alper Kaya)

HI SAHRA, I WAS DIAGNOSED IN JAN AND I HAVE 5 MONTHS TO GO. I THOUGHT URE VIDEO ON MDS SHOULD HAVE WON MANY AWARDS. I LOVE IT. SO POWERFUL.
I AM LOOSING STRENTH EACH DAY. IT'S SP FRUSTRATING TO ACCEPT MY LIMITATIONS. TOU ARE MY INSPIRATION TO CONTINUE, THANK YOU SARHA.

(Posted on 2009-09-06 05:28:00 by TINA)

Hi Sarah! You are a great twitter buddy! My full love and support go to you in your every endeavor. Thank you for your strength to speak up and out!

Sarah,
You continue to inspire me!!!
Have so enjoyed connecting with you via facebook. You face your challenges and this horrible disease with such determination but with grace also!
United we will support each other and find treatments and a cure!!!!

(Posted on 2009-09-01 01:01:00 by Susan Baker)

My dearest Sarah, I am in awe of you! You may not realize it yet but you have already beat MND/ALS. You are a true inspiration. My Dad was Diagnosed 2 months ago with ALS and I have been so desperate to find that he was misdiagnosed or find a quick cure that it has taken over my life. Then I come across your story and realized that we Can beat this diease! The real cure is in our hearts and minds..bless you and please keep in touch...Much Love, Melissa

(Posted on 2009-08-27 14:09:00 by Melissa Bennett)

Thanks for have the possibillity to read what you have find out about this disease..You are a strong woman..All my thoghts and respect for you..
Best regards Lene

(Posted on 2009-08-19 12:56:00 by Lene Jette Hansen)

Sarah

Wow. You have a spirit that all of mankind should live by. Your spirit has already generated waves of Love, Passion and Affection from us to you....You are incredible

Ian Kleinberg London England18 08 2009

(Posted on 2009-08-15 11:25:00 by Ian Kleinberg)

I can never find the words to say my respect and admiration for you. I am proud to be in the ranks as a fellow pals with you. love and respect always my friend............................
JENNY HOFF SPOKANE WASHINGTON USA
PALS APRIL 2006

(Posted on 2009-08-15 04:39:00 by JENNY HOFF)

Hi Sarah i have been speaking to you on facebook and i believe these pictures on hre show you are gorgeous my dad has mnd and thinks you are a inspiration aswell speak to you soon Holly xxx

(Posted on 2009-08-14 20:22:00 by Holly Norman)

Your story is a total inspiration Sarah !

(Posted on 2009-08-10 12:12:00 by Tim Feinberg)

I KEEP YOUR UTBE PERFORMANCE OF MND ON MY HOME PAGE ON FACBOOK. I ENCOURAGE ALL MY FRIENDS TO VIEW IT AND WHAT A STRIKING AND ARTFUL PERFORMANCE. THANK U AND KUDOS TO YOU AND EVERYTHING U DO!

(Posted on 2009-08-08 23:57:00 by TINA L'HEUREUX)

Wow - brilliant! I remember being blown away by the amazing movie (my brother Paul linked it to me about four months ago), but the Making Of video was also very moving and inspirational. I'm so sorry the TV types are scared of it - it was kind of the idea to be terrifying (duh!). Fantastic website all the way 'round - great job and inspirational, as usual.
Very best regards.

(Posted on 2009-07-22 12:21:00 by Mary Jo Winkler-Callighen)

Beautiful Sarah~ Thank you so much for your strength and inspiration. My mom has been diagnosed with ALS. We live in the U.S. and I have seen your movie. Its so powerful and it really allows me to try and understand what my mom is going through. What advice would you give a caregiver to a MND survivor? I get frustrated that I cannot do more for my mom and wondering what more I can do for her. Any advice would be appreciated. Thank you for being you.
Hugs,
Briana

Sarah you brave brave lady an absolute inspiration, I have a tear in my eye not from sadness but sheer admiration. An excellent site and also an eye opener, thank you for sharing x

(Posted on 2009-07-20 20:30:00 by Bill Mead)

Can I just say Sarah, that having looked through your site, you truly are an inspiration to us all. And the site looks great!

(Posted on 2009-07-16 22:13:00 by Darren Edwards)

Hi Sarah, I have heard about you from my friend Sue Field, who has shared with me some of your journey with MND, I would like to say thank you for the inspiration you have been to my friend xx

(Posted on 2009-07-10 15:07:00 by ann shepherd)

hi Sarah, reading your story makes me realise how lucky i have been. my husband and adult daughter have been supportive all the way through and have kept me from falling into depression. i have been realising lately how awful it would be to add depression to the mix. we all have you as a wonderful positive focus. you can't begin to know how many lives you have touched, bless you for this and all your amazing work xxx

(Posted on 2009-07-08 06:21:00 by sue field)

wow! - what a fab website - you truly are amazing - an inspiration to all - so proud to call you my friend xx

(Posted on 2009-07-07 22:39:00 by Jacqueline)

I love your website -you are one of the most special people I have ever had the priveledge to meet and I am so glad we are friends - you give me and so many others so much inspiration and strenght for the future - my love always Sally-Ann xxx

(Posted on 2009-07-07 22:30:00 by Sally-Ann Slater)

love your site! keep blogging...you are an amazing woman!

(Posted on 2009-07-07 22:14:00 by amie)

Hello beautiful friend!! Wonderful site & blog! You are a true hero and are helping so, so many. You are an inspiration for showing others that you can "stand up" and make a difference. With love & hugs xo

(Posted on 2009-07-07 21:58:00 by michele dupree)

Hey Sarah! This is great! Keep up with the blogging - you're a great writer and I will keep reading it! Hope Aviva is ok - fingers crossed it is just a summer cold. Love Charlotte x x x

(Posted on 2009-07-07 21:43:00 by Charlotte Ashfield)

Great websiteSarah! You are a true inspiration and I am so proud to call you my friend. Love you lots, Shireen xxx

(Posted on 2009-07-06 21:14:00 by Shireen)

Sarah, a true inspiration. A very special lady who deserves all good things. May your illness never get any worse and hopefully a cure can be found to help you and others in the future. With all good wishes. Anna Etzioni (Gilbert)

(Posted on 2009-07-06 20:52:00 by anna Etzioni nee Gilbert)

so glad its all come together for you. fantasic work. well done xxx

(Posted on 2009-07-06 20:48:00 by laura milford)

Fantastic work. I think you are great !

(Posted on 2009-07-06 08:55:00 by Adriana Cammalleri)

Great site, and fabulous work all round. You have the gift of challenging people's assumptions in a creative and unavoidable way, and to think outside the box.