Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) or Reed’s Syndrome is one of several rare familial syndromes involving kidney cancer.
The HLRCC Family Alliance’s mission is to provide up-to-date information on the disease to patients and their families and also to clinicians as because of its rarity most people are unaware of its existence including clinicians.
The HLRCC Family … Read More

HLRCC Quick Facts

Please refer to our Quick Facts brochure for a quick overview and then study our Handbook for more detailed information about the condition. … Read More

HLRCC: A rare syndrome that causes cancer…Now What?

"Despite the fact that I’ve had the symptoms for more than twenty years, because this is a rare disease, it went undiagnosed. I wanted to share my story so that maybe if someone out there is dealing with this..."
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Latest News

Starting in January 2018 it was agreed that we would upgrade the hlrccinfo.org website to be smart phone friendly using WordPress. This upgrade was … Read More