Learn About Brain Tumors

Many sites already exist and do an excellent job of providing information on brain tumors, both adult and pediatric. Over the course of our research, we have turned to the following for assistance and education. We hold you will find this list valuable.

Accelerate Brain Cancer Cure (ABC-2) was founded after Steve Case’s brother Dan lost his life to brain cancer. They bring a venture approach to funding and expediting brain cancer research, particularly focused on high-grade glioblastoma. Their guidance page has easy-to-digest information for those seeking early stage understanding of brain cancer.http://abc2.org/guidance

The National Brain Tumor Society is the largest nonprofit dedicated to the brain tumor community in the U.S. They have a pediatric brain tumor research collaborative, focused on high-grade gliomas only. More information can be found at:http://defeatpediatricbraintumors.org/overview

Learn About Childhood/Pediatric Tumors

The Childhood Brain Tumor Brain Tumor Foundation, http://www.childhoodbraintumor.org is a volunteer-run organization driven to help educate families whose children have been diagnosed with brain tumors. Our mission is to provide grant funding for researchers to further the cause to find a cure. This site gives general knowledge of many aspects of care from brain tumor types, imaging, to late effects of treatments and treatment types.

The MaxLove project (http://www.maxloveproject.org) is an innovative nonprofit organization that advocates for the integration of evidence-based quality of life care and integrative medicine into standard pediatric cancer care. They support pioneering cancer research, family-centered programs, easy-to-understand health education, and support for complementary and preventive therapies in healthcare settings. Each of these initiatives aims to improve quality of life and lower health risks for childhood cancer patients, survivors, and their families.

The Pediatric Brain Tumor Consortium is composed of 11 academic centers and children’s hospitals located across the United States which are competitively selected based on their scientific excellence and clinical expertise in pediatric brain tumors. The institution’s and contact information can be found here: https://www.pbtc.org/institutions.html