In October 2016 our son Jake was born with a unilateral cleft lip and palate and a gum notch. CLAPA was and continues to be a great source of strength to me and I hope to be able to offer you some reassurance and support as you begin the same journey.

I'm the mother of twin boys born two months prematurely in 1997 in the USA. My husband David and I moved to Sheffield when the boys were 10 months old. Ben was born with a cleft of the hard and soft palate and Van der Woude syndrome. Killian was diagnosed with pyloric stenosis at about 6 months so both of my boys had extensive feeding issues.

Hello, my name is Jane and I am the mum of George, who was born with a bilateral cleft lip and hard palate and a unilateral soft palate in April 2009. I have lots of experience with express feeding for a cleft child. At the age of 22 months George was given hearing aids for his bilateral glue ear. I am based in Wolverhampton.

Hi I’m Nadine, I live in Polesworth, Nr Tamworth. I’m married to Brad and we have a beautiful daughter Amelia who was born in 2010 with a bilateral cleft lip and palate. I am always here with lots of support & happy to answer any questions, however how big or small.

Hello my name is Maria and we have a daughter who was born with a cleft of the soft palate. As a family we have also been diagnosed with Stickler’s Syndrome type 1 along with eye and joint issues. Lily wears hearing aids and has had speech therapy.

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