tag:blogger.com,1999:blog-14743001.post2670233434963583033..comments2018-03-03T11:37:36.373-06:00Comments on Notes from Dr. RW: The Ross Sistersrobert donnellnoreply@blogger.comBlogger8125tag:blogger.com,1999:blog-14743001.post-71311880256191961202016-08-31T19:13:32.519-05:002016-08-31T19:13:32.519-05:00My husband, his brother and their mother passed aw...My husband, his brother and their mother passed away from aortic aneurysms. Last year a doctor determined that my daughter has EDS based that on how flexible her joints are. There are different forms/levels of EDS but I think joint flexibility is the common denominator. I pray to God everyday for a treatment or cure. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-14743001.post-50671821929767271922015-09-03T13:25:49.278-05:002015-09-03T13:25:49.278-05:00My daughter has EDS. The very first thing I though...My daughter has EDS. The very first thing I thought when I saw this video was EDSAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-14743001.post-60824115595536266272014-05-08T12:24:15.614-05:002014-05-08T12:24:15.614-05:00Are any of them still living? What was thier quali...Are any of them still living? What was thier quality of life after 40 ...Eds is not a mental issue and most ppl dont know they have it. Im sure back then it would have have been a diagnosis that ppl got. Im 34 and can still do the things they did in the video. Its not good for those of us to do with EDS but I just got diagnosed a yr ago before that I had never heard of EDS and didnt know that theAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-14743001.post-8837241009463937102014-01-10T19:01:22.595-06:002014-01-10T19:01:22.595-06:00As this video is circulating around Facebook, ever...As this video is circulating around Facebook, everyone in the Ehlers-Danlos forums are thinking they have it. A lot of us are just as flexible. (takes one to know one sort of thing). Were just curious how their joints held out later in life when they weren&#39;t so active. Their muscle tone probably helped.... Many people have this condition, but it goes undiagnosed. Flexibility is just one zebrahttps://www.blogger.com/profile/11469960234715383308noreply@blogger.comtag:blogger.com,1999:blog-14743001.post-41454877193230903152013-12-05T19:18:50.495-06:002013-12-05T19:18:50.495-06:00Crystal,
There is no...or at least should be no......Crystal,<br />There is no...or at least should be no...stigma attached to having Ehlers-Danlos Syndrome. It is certainly not a mental illness. A very few lucky ones don&#39;t even realize they have it until significant joint pain later in life. If your grandmother and grand aunts lived past 60 and didn&#39;t suffer pain, that&#39;s great; they probably didn&#39;t have it. But there&#39;s no Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-14743001.post-50805618367983977842011-08-14T22:45:11.023-05:002011-08-14T22:45:11.023-05:00Crystal, My father was an Army Air Corp Pilot with...Crystal, My father was an Army Air Corp Pilot with Robert Hightower. They were good friends while in Smyra, TN. My father is still living @ 92. Would love to get in contact with you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-14743001.post-532070755139571662010-12-08T16:23:58.768-06:002010-12-08T16:23:58.768-06:00No, they did not. they were not physically nor men...No, they did not. they were not physically nor mentally ill. I am the Granddaughter of Betsy Ann Ross so I would know...If you have any other questions I would be pleased to be asked them.Crystal Nagynoreply@blogger.comtag:blogger.com,1999:blog-14743001.post-39574191587427688492010-05-05T23:51:55.608-05:002010-05-05T23:51:55.608-05:00Amazing video indeed. Wonder if all three suffer f...Amazing video indeed. Wonder if all three suffer from Ehlers Danlos syndrome.srinivasnoreply@blogger.com