Well, the neurologist really didn't know, which is not a surprise considering that I'm literally the first Chiari patient he's seen. He said that the MRI wasn't remarkable in that it doesn't scream that I need surgery, but the increasing neurological problems indicate that it's really the only option and is probably a necessity. As to when it will happen and at who's hand, I cannot begin to say. I have referrals to 2 different neurosurgeons, so hopefully one of them will be competent. One I've seen before and he's a class A jackass, but he's supposedly the best in the state, so again, we'll see.

So the verdict is...we're right where we started and we don't have a timeline for new information yet. But at least no one to my knowledge, other than my mother, thinks that I'm faking the problems anymore!

2
comments:

www.nolanotes.com
said...

Well, dang. Not really the news we were wanting to hear. Hope you find a doctor you feel you can really but your confidence in!

Hi ~ I am a fellow Chiarian who was diagnosed a year ago ~ do as much research as you can ~ seek doctors who understand Chiari and will listen to you! If you can, get an appointment at The Chiari Institute in NY ~ http://www.northshorelij.com/body.cfm?ID=6407

I have a blog to document my journey with my brain tail ~ check it out if you want ~ I have some helpful Chiari links, too ~ Laciehttp://livelovelaugh-lace1013.blogspot.com/

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About Me

I'm a 26 year old former teacher turned full time graduate student. I live in Southern California after a 3 year stint in New Orleans with my husband Slappy (formerly The Fiance) and our cats (yea, we're those people).
In February of 2006 I was diagnosed with Chiari Malformation, which is a fancy way of saying that my brain was too big for my skull (get it? overflowing brain). On November 27th, 2007 I had brain surgery which allows my brain to exist indefinitely in my spinal canal. 13 staples, one cow heart lining and a multitude of doctors and medications later, I'm living a much improved decompressed life.