Communication between donors and patients

Protecting donor and patient anonymity and confidentiality is a priority for the ABMDR and our centres.

We know that you may need information that can help you better understand the selection of your donor and your prognosis. Your doctor can provide specific de-identified information for this purpose.

The ABMDR also understands that donors might want to know about your progress after the transplant. The transplant team looking after you completes this report. The report must not include any identifiable or personal information, and can take place 30 days and 12 months after transplantation.

The ABMDR allows anonymous communication between you and the donor. This can include correspondence or exchange of gifts, but no personal details such as name, date of birth or address may be disclosed. Ask your transplant doctor for more information.

The ABMDR discourages direct contact between donors and patients. However, we also recognise that you and your donor may decide, after receiving appropriate counselling about the implications of this decision, that you want to release details to the other party. If you want to release your personal details, you will need to sign a consent form. Ask your transplant doctor for more information.