Thursday, December 29, 2011

Holiday Hello and Thank You

I am long overdue writing a thank you to all of you for your overwhelming kindness and concern for me and my family. I read each and every one of your comments and e-mails and appreciate the thoughts and prayers sent our way. It really meant a lot to me.

I would like to share a quick update with all of you. After a very rough couple of weeks around the Thanksgiving holiday, Bruce's condition has stabilized. Some of the troubling symptoms he was experiencing are under control and he is much more comfortable now. He can no longer walk or stand and I have become quite adept using a hoyer lift to get him in and out of his bed and/or power chair. His voice is pretty much gone but he is still able to use his hands and that has been a blessing as technology has become his way to communicate with family and friends via texting, e-mail and facebook. It hasn't been an easy transition into what we now call our new "normal" but we do feel very blessed that we are welcoming in a new year together.

Happy New Year to all of you! Thank you again for all of your support!

Oh my prayers go out to you and the family. Bless his heart, and thank goodness for technology. I know from personal experience the transition we must go through to care for them, and you have a lot of strength.

Jane you and your husband and family will be in our continued thoughts and prayers. Thank GOD for technology today and the means of communicating. Have a Happy New year! Wishing you all the very best in 2012, and your new "normal".XO

So glad to hear this good news, looking forward to the time you can start posting again as I am a new follower and love what I have seen on your previous posts. Bless you for being a gracious caregiver and seeing the good side of a bad situation, may you continue to have the strength, and positive attitude to continue this journey with your husband...God Bless you and the family...Kim, Puyallup WA

Many prayers for you and your husband. I'm glad that things somewhat have strengthen out for you and you are able to adjust...May the Father above always be a comfort to you and your husband...Much love n hugs Janice @ spoonwither.blogspot.com

Jane, you've been in my thoughts so much these past few weeks. I'm happy to hear your husband has stabilized, and that you're able to spend this time together. I can't imagine what all you're dealing with. Wishing you and your family all the best.

Jane, I'm so glad to hear Bruce's condition has stabilized. Thanks for the update! It's so wonderful the technology exists for him to be able to continue to communicate with loved ones as that must be a comfort to all of you. Prayers and hugs to you and your family! Happy New Year!!

thanks for the update, Jane. Know that you have lots of folks out here in cyberspace wishing you and your dear husband well. How wonderful that computer technology is helping him communicate and stay connected with you. Best wishes. Stay strong.

I've been thinking about you and was so happy to see your updated post today. So glad to hear that your husband is more comfortable and that you have tools to help and the technology so that he can communicate. Love and best wishes.

I hope and pray that you can spend as much quality time with Bruce and your family. I know the road that you are traveling so well, and deeply understand your heartache, pain and emotions that are running rampid.God be with you!

It is so good to hear from you. We have all been so worried about your husband, you, and your family. I am so inspired by your positive attitude and acceptance, though I'm sure it is SO difficult and draining. Please know that complete strangers do care, and pray that there will be many blessings in this journey you are on. God bless.

Jane, thanks for the update. I think about you all the time! I was praying for your hubby to have a huge rally, but I guess I will have to be happy with stabilized and comfortable, that is what is most important, we all want him to be comfortable! Give him a hug from all of us, he must be scared and sad...Ya know, it's just not fair, what a crappy cruel disease! We are all here for you 24/7 and thrilled you will be welcoming in a new year together!

I just want to add my good wishes to you and your husband and family. So great that he can still communicate with a computer, it would alleviate a lot of his frustration I am sure. You will all stay in my thoughts. Thanks for updating us all.

Hi Jane-- so glad you were able to pop in and give us an update. Wonderful to hear that Your Hubby is stabilized and made it through the holidays. You're on my mind. I'm praying still for You and Him ...as well, as your whole family.

Thank you so much for the update Jane. I've been thinking about you and your family much over the holidays. I'm sorry you are having to go through this but very thankful that you were able to spend the holidays together and like you said... ring in the new year. How wonderful that you have found a way to communicate.

Jane, I'm so glad to hear that he is stabilized. I have thought about you and your family often and will continue to keep all of you in my thoughts and prayers. May God Bless you and your family in the New Year...hugs, Gail

Glad to hear this update Jane! You come across very resilient and strong which must help in this situation sad as it is.A well known broadcaster here on TV in Ireland was diagnosed with the same condition and has had to give up his job since as his speech was becoming noticeably slurred.Its a horrible illness.Take care.

I am so glad to hear that your husband has stabilized! I can't imagine what your journey is like, but I continue to pray for you all. May you make some wonderful memories in your new "norm". Wishing you a wonderful New Year.

I discovered blogs about a yr ago and enjoy reading a few in the evening as a stress reliever. I've been a silent follower of your blog for about a year and have looked forward to your consistent postings and marveled at your creativity and insight. Even though I have not yet duplicated any of your great ideas you have brought me much inspiration and joy with your re-purposing and crafting genius. We've never communicated but regardless, I feel a bond with you and as such needed to thank you for your blogging and to offer my sympathy over your husband's illness , my happiness that you've found a new "normal" in dealing with the illness and my wishes for a wonderful start to a new year.

Dear Jane, wishing you continued strength as you journey along in your new normal. I am inspired by your positive nature and grace. May God bless you and Bruce abundantly in this new year. Wishing you peace, joy and love! Tammy

Blessings to you! I've been checking your blog from time to time to see how you and your family are doing. I was so happy to read that things are more stable. May God keep you close as you journey on in 2012. I pray for peace for you.

Praying for strength and peace along this journey you are on...thanks for the update. So thankful that technology is helping you both! We miss you here in blogland and hope you can feel the love poured out to you!

Thinking of you both, Jane, as you try to adjust and find joy in the moments you share with each other. I know it must be terribly hard on you right now, physically and mentally. Praying that God gives you the strength to balance everything and stay positive. Hugs

Jane, so good to hear from you. You and your husband have been on my mind lately. So happy to hear that he still has use of his hands. That is such a big relief I'm sure that he can still communicate via texting. The loss of communication is so very difficult. I can remember my brother's frustration so well. Happy New Year to you both. Hugs to you!

Jane, I have just so recently "met" you but I want you to know that you are a blessing and an inspiration. I pray that God continues to hold your whole family close as you process each day of this new year. I am so thankful that you are getting to welcome it together!!! Kelly

I don't know how I missed seeing this post! You and Bruce have been in my daily prayers and will continue to be as you continue on this journey. "new normal" is an appropriate description I guess. I'm glad that in this age of advanced technology, Bruce can still communicate with devices. I'm sure you are completely drained. I hope you are getting rest and taking time to tinker...your mind needs those breaks. Take care Jane.Hugs~Joyce

Thankful your husband's condition has stabilized into a new 'normal'. Also thankful for today's technology that is allowing him to communicate with you and your family and friends.Wishing you all God's blessings in the new year,Susanne.

Happy New Year Jane! I am so glad to hear that Bruce has stabilized and that you are finding your new normal... I just knew that you would. You have an amazingly positive attitude matched with amazing strength. Your family will continue to be in my thoughts and prayers. May 2012 bring you an over-abundance of beautiful blessings.love,t.xoxooxoxooxo

My 18 year old son was just diagnosed with Becker's Muscular Dystrophy this past July. I understand how difficult it is to watch someone you love progressively get worse. Many prayers for you and your family.

I have just caught up with your recent blog posts and was so saddened to read of your husband's illness. I have had experience of this debillitating condition through a friend and wish you both courage and love. M x

It's so good to hear from you. I'm glad that things have settled down now and you are able to get back to blogging. A couple of my friends were able to borrow a voice synthesizer from the ALS Association, but I'm thinking you might already know about that technology and he prefers what he's using. Thought I'd mention it anyway. You're in my thoughts and prayers.

About Me

I'm Jane and I'm a junker. In my spare time you will find me shopping for treasures at local flea markets, thrift stores and antique malls or repurposing said treasures into new pieces that I use in my home or give as gifts to family and friends. Somehow the shopping part has overtaken the creating part but I typically have on hand what I need when inspiration hits. I enjoy sharing my projects on my blog and appreciate you stopping by for a visit.