User Reviews

Reviewer: Dom, 35-44 Female on Treatment for 10 years or more (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment: I have had ulcerative colitis for almost 18 years. This drug, combined with asacol, is the only thing that has kept me alive. I have been on 150 mg a day for over 10 years. Because of this drug, I have been in remission for close to 9 years with an excellent quality of life.

Comment:I have had ulcerative colitis for almost 18 years. This drug, combined with asacol, is the only thing that has kept me alive. I have been on 150 mg a day for over 10 years. Because of this drug, I have been in remission for close to 9 years with an excellent quality of life.Hide Full Comment

Reviewer: 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 1

Comment: Have pan colitis, prednisone dependent, taking aza.for 6 months. Started on 25 mg. low dose due to low tmpt, no help, increased to 50 mg. greatly reduced symptoms, ready to increase, but now have high liver enzyme (alkaline phosphate). Doing full liver function panel and ultrasound of liver. Discussed biologics next. Advise everyone with IBD to see an IBD specialist along with gastro.

Comment:Have pan colitis, prednisone dependent, taking aza.for 6 months. Started on 25 mg. low dose due to low tmpt, no help, increased to 50 mg. greatly reduced symptoms, ready to increase, but now have high liver enzyme (alkaline phosphate). Doing full liver function panel and ultrasound of liver. Discussed biologics next. Advise everyone with IBD to see an IBD specialist along with gastro. Hide Full Comment

Reviewer: 35-44 Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment: I've had UC for 13 years and would have a flare-up twice a year for 2 to 3 months at a time, every year! (seasonal) This drug has gotten me off Prednisone which I loved too but wasn't healthy for me. My doctor gave me this drug and I love it! I've been in remission for the first time since I started this drug. I take 50mg daily and I have no side effects and I have my life back!!!!

Comment:I've had UC for 13 years and would have a flare-up twice a year for 2 to 3 months at a time, every year! (seasonal) This drug has gotten me off Prednisone which I loved too but wasn't healthy for me. My doctor gave me this drug and I love it! I've been in remission for the first time since I started this drug. I take 50mg daily and I have no side effects and I have my life back!!!! Hide Full Comment

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Reviewer: Roberta, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 2

Ease of Use

Current Rating: 2

Satisfaction

Current Rating: 2

Comment: Have been on Azathioprine 2 1/2 years. Althogh it somewhat control crohns, the payoff is hardly worth it. Do have flareups, but the tradeoff is joint and muscle weakness. I can hardly open or squeeze toothpaste in the morning. Also tiredness, inability to concentrate, eye blurriness. Feel like my bones are deteriorating. Lately, been feeling it in my neck and spine. Its affected my gait as
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Comment:Have been on Azathioprine 2 1/2 years. Althogh it somewhat control crohns, the payoff is hardly worth it. Do have flareups, but the tradeoff is joint and muscle weakness. I can hardly open or squeeze toothpaste in the morning. Also tiredness, inability to concentrate, eye blurriness. Feel like my bones are deteriorating. Lately, been feeling it in my neck and spine. Its affected my gait as well. Feel same as reviewer, who says they take it for doctors benefit. Am unable to perform tasks I used to before treatment. The tradeoff has definately changed quality of life for me. Have been feeling numbness in legs and hands after a nap. Also lost quite a bit of weight since I began this drug. Anyone else lost weight, despite a ravenous appetite? Feel starved all the time. Ask me, they should take this drug off the market. I feel like an 80 year old in a 54 body. I would rather be running for the bathroom as at least I had energy. Dr. doesnt know what personal hell I go through as doctors go. Wasnt informed of a b-12 deficieny I developed a year ago. People, always ask for a copy of your blood results! I'm tired of being treated as another statistic. To boot, we have to worry about developing lymphoma. I'd rather live with the crohns. Hide Full Comment

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